Everything You Know About Disability Is Wrong

Courn Ahn is a designer, content creator, and advocate who cares deeply about accessibility and social justice. Their work focuses on helping people see disability, identity, and community support in a new way, especially through the lens of queerness, race, and being neurodivergent.As a Queer, nonbinary, mixed-race Korean creative, Courn shares from personal experience and speaks honestly about the challenges that come with being disabled in a world full of assumptions. Courn's journey has been about unlearning shame, accepting who they are, and understanding that using visible accommodations isn't something to hide, it's a powerful way to take care of yourself.Courn also talks about how people often assume you don't need help if you look like you're doing well, and how sharing online as a disabled person can be both meaningful and exhausting. Through their design work and presence on social media, Courn is not just creating content, Courn Ahn is also  creating space for real conversations, celebrating differences, and reminding us that accessibility should matter to everyoneKey Moments 00:00  What people get wrong about autistic people 06:43  Struggling with what to share online 14:18  Tools that make life easier 20:42  How style helps show who I am 27:01  Feeling free to be myself 33:13  How different parts of my identity connect 52:57  Finding confidence through disabilityConnect with Courn AhnLinkedin: https://www.linkedin.com/in/courtneyahndesign Website: https://www.courtneyahndesign.com/Instagram: https://www.instagram.com/candy.courn/

Jillian Curwin, Director of Communications for the Mascots Matter Campaign, is an advocate, storyteller, and content creator reshaping the conversation around disability, access, and representation. In this episode of Everything You Know About Disability Is Wrong, she joins hosts Lily Newton and Erin Hawley for an insightful discussion.Jillian shares her experience as a little person navigating an often inaccessible world, particularly in the fashion industry. She reflects on what sparked her advocacy, how misperceptions about disability motivated her, and why authentic representation matters. Jillian also talks about embracing a disabled identity, the value of lived experience, and the role of community in fostering self-acceptance and empowerment.Her story offers fresh perspectives on adaptive fashion, confidence, and finding one's voice, both in the disability community and beyond. Listeners will gain valuable insights that challenge perceptions of disability and redefine what it means to be seen and heard.Key Moments06:01 Awakening to Advocacy07:11 Diverse Representation in Fashion19:02 My Disability Advocacy Journey23:44 Redefining Disability Through Experience34:37 Issues in Disability Fashion Inclusion45:00 Empowering Disability RepresentationConnect with Jillian CurwinLinkedIn: https://www.linkedin.com/in/jillian-curwin-04827056 Website: https://mascotsmatter.net/about-page/  

Kyla and Jedidiah Mora are a neurodivergent couple, writers, and advocates. They are the authors of “Today My Brain Is a Dinosaur”, a popular children's book that helps kids understand autism, ADHD, and different ways of thinking.  Their journey started with their own diagnoses of autism and ADHD as adults. After years of confusion and challenges, they found clarity, self-acceptance, and a desire to help others feel less alone.  Kyla is a high school teacher and journalist who is passionate about education and storytelling. Jedidiah works in the water industry and has a strong interest in mechanical engineering. Together, they combine their skills and personal experiences to create stories that celebrate neurodivergent kids and families. Through their writing, they aim to break down stigma, spark conversations, and make children's books more inclusive. Key Moments00:00 Intro and Audio Descriptions06:53 Own Voices, Own Stories Award for Disabled Authors12:33 Internalizing Blame; Autism, ADHD, and Trauma21:50 Autism and Learning to Be Your True Self26:49 Embracing Hyperfocus in a Positive Way28:21 Job Challenges and Personal Struggles44:44 Unique Traits of Autistic Girls59:09 Understanding and Accepting Connect with Kyla Mora Twitter: https://x.com/kylapmora Website: https://cherrylakepublishing.com/shop/show/54094 Jedidiah MoraWebsite: https://cherrylakepublishing.com/shop/show/54094 

Tiffany Yu is a disability advocate, entrepreneur, and author of The Anti-Ableist Manifesto. She started her career at Goldman Sachs before becoming a leader in disability inclusion.  After acquiring a disability as a child, she struggled with loneliness and self-doubt. Over time, she turned her experiences into advocacy and founded Diversability, a community that celebrates disability pride and fights stigma.  She works to break barriers, share personal stories, and create more inclusive spaces. Through her efforts, she shows that disability is diverse and that working together can create real change.Key Moments7:00 Overcoming Isolation and Disability14:13 Collective Advocacy in Action22:00 Disability Language Made Simple23:25 Safe Spaces 35:34 Beyond Assumptions: Tiffany's Story49:16 Mental Health 01:02:22 Reaching Young ReadersConnect with Tiffany YuTwitter: https://x.com/imtiffanyyu Website:http://tiffanyyu.com/ The Anti-Ableist Manifesto: https://www.tiffanyyu.com/book 

Experiencing the world isn't just about sight, it's about tasting, touching, hearing, and smelling, too. Using all our senses helps us connect more deeply to the world around us.Dr. Hoby Wedler is a chemist, entrepreneur, and advocate for inclusivity. He holds a Ph.D. in physical organic chemistry from UC Davis and founded the Wedland Group to explore how our senses shape emotions and connections.He creates unique food and drink experiences that help people appreciate the little things in life. He also works to break stereotypes about disability, inspiring others to reach their full potential.Dr. Wedler is also the founder and CEO of Hobie and Company (Hobie and Co online), part of Wedland Group. His company offers amazing blindfolded tasting experiences that help people explore their nonvisual senses.He shares his passion for sensory experiences on TikTok, where he has around 200,000 followers.Lastly, he runs Emotitec (emotitec.com), a company based in Italy.Key Moments09:14 Embracing Unseen Experiences  16:17 Empowerment Through Disability  19:19 Redefining Independence  28:24 Diversity Fuels Success  34:43 Supporting Blind Children  39:47 Parents Presuming Competence52:36 Sensory Experiences FounderConnect with Dr. Hoby WedlerLinkedIn: https://www.linkedin.com/in/hobywedler CEO at Wedland Group: https://wendland.efsadvisors.com/ President at EMOTITECH: https://emotitech.com/ 

"Just because you can't see it, doesn't mean it's not real."Onyinye Udokporo, CEO and founder of Enrich Learning, dives into a conversation that's both eye-opening and deeply personal, exploring the differences between UK and US disability cultures. From how each country approaches accessibility and support to the ways people talk about neurodivergence, it's clear that culture shapes the disability experience in ways we don't always realize.A big theme in this discussion is the power of language—how the words we use can either create understanding or reinforce barriers. Onyinye shares why being intentional with language isn't just about being polite; it's about making the world more inclusive and accessible for everyone. This conversation is a reminder that small shifts in how we speak and think about disability can make a huge difference.Key Moments00:37:03  Initial Rejection00:38:53 Mother's Screening00:44:50  Shared Experience00:45:30 Cultural & Generational Factors10:15 Neurodivergence vs. Mental Health30:00 Empowering Language45:15 Authentic Conversations55:00 Cultural Pressures1:05:00 Dyslexia Advocacy1:30:00 Access Through Tutoring1:35:00 Reclaiming “Inspiring”Connect with Onyinye UdokporoLinkedIn: linkedin.com/in/onyinyeudokporoPersonal Website: onyinyeudokporo.comCompany Website: enrichlearning.co.uk

Richard Jacobs is a dedicated gamer and member of the esports team QuadGods. He discusses his journey of resilience, the pivotal role gaming plays in his life, and the misconceptions he faces as a disabled individual.Richard shares about the power of community and how his streaming “family” has allowed him to harness his competitive spirit and embrace his emotions. Key Moments13:32 - Inspiration and belonging.21:57 - Supports family through streaming.31:24 - Prefers controller over keyboard/mouse.43:23 - Handles losses calmly; focuses on perseverance.59:44 - Builds deep community connection.Connect with Richard JacobsInstagram: https://www.instagram.com/breadwinner1007/Website: https://quadgods.com/the-players

Humor can educate and challenge, but it must highlight issues without mocking the disability community. In this episode, we explore how satire can play into advocacy and ask, “What exactly makes good satire?”. Steven Verdile, Founder of Squeaky Wheel Media, shares his insights on the critical intersection of disability and content creation. Steven discusses the significance of focusing on specific issues, particularly those impacting the disabled community, and the protective measures taken to ensure writers' safety. Key Moments06:27 Humor exposes accessibility challenges.08:41 Accessible platforms empower disabled writers.23:11 Disability experiences and representation vary.38:13 Humor addresses disability policy.49:07 Steven's school experience.Connect with Steven VerdileLinkedIn: https://www.linkedin.com/in/steven-verdile Website: https://thesqueakywheel.org/ Squeaky Wheel Instagram: https://www.instagram.com/thesqkywheel/?hl=en

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked.Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with being gaslit by medical professionals and the resilience it has taken to continue advocating for herself.Key Moments2:54Accessibility in spaces18:27 Living with EDS31:28 Experiencing medical gaslighting52:45 Advocating for inclusive training and supportConnect with  Annie SegarraLinkedIn:https://www.linkedin.com/in/anniesegarra Website:https://invisibleproject.org/annie-segarra/ 

Your co-hosts Lily Newton and Erin Hawley return with a candid "Just Between Us" segment on this episode of Everything You Know. They discuss the importance of authentic storytelling in media, using recent casting choices in "Wicked" and Disney adaptations as a jumping-off point. The hosts explore why representation isn't enough without real inclusion and the need for self-accommodation to destigmatize accessibility. Lily and Erin also reflect on highlights from the past year, sharing their "All I Want" asks for better support.Key Moments00:00 Authentic casting matters03:44 Frustration with film clichés11:38 Tart cherry juice helps sleep14:20 Joining Easterseals' campaign17:14 Destigmatize accessibilityConnect with Lily NewtonLinkedIn: https://www.linkedin.com/in/lily-newton-3b0b5b229Website: https://www.easterseals.com/Connect with Erin HawleyLinkedIn: https://www.linkedin.com/in/erinhawley2Website: https://www.easterseals.com/

Advocacy is not just about raising awareness; it's about creating real change.Madison Tevlin is an actor, Host, Model, and Advocate. She is known for her impactful work in the "Assume That I Can" campaign for World Down Syndrome Day and her role in "Champions" alongside Woody Harrelson. Madison shares her wonderful journey and passion for music and storytelling.Madison talks about her upcoming podcast, "21 Questions," featuring stars like Paris Hilton and Nelly Furtado. Madison opens up about the challenges of breaking stereotypes associated with Down syndrome and emphasizes the importance of community support in her life.Key Moments00:00 Multi-faceted journey06:24 Music and family enhance wellness17:53 Opening up about Down syndrome22:19 Perfect fit for the roles27:26 Redefining Stereotypes Through Storytelling45:25 Education integration fosters communityConnect with Madison TevlinInstagram:https://www.instagram.com/madisontevlin/?hl=en Website: https://www.madisontevlin.com/ 

Humor is a bridge to understanding; it transforms conversations about disability into moments of connection.Pamela Schuller is a passionate disability advocate and stand-up comedian. Pamela shares her journey with Tourette syndrome and how humor has helped her tackle tough conversations about disabilities.Pamela opens up about finding the right balance between vulnerability and oversharing, the challenges of accommodating disabilities in public spaces, and her unexpected shift from stand-up to storytelling. Pamela discusses the impact of her experiences on her mission to create more inclusive environments.Key Moments08:05 Challenging stereotypes.14:27 Humor fosters resilience.17:37 Goals: laughter and inclusivity.30:53 Accepting emotions reduces judgment.43:45 Tourette's and performance.Connect with Pamela SchullerLinkedIn: https://www.linkedin.com/in/pamelaschuller Website: https://pamelacomedy.com/ 

“Accessibility isn't just a feature; it's a necessity for truly inclusive spaces.”Rachel Lowenstein, Founder and Culture Expert at Rachel Lowenstein Consulting and Divergent Convergent, joins Lily Newton and Erin Hawley on the show. Rachel talks about why neuro-inclusion is a crucial part of workplace accessibility and how her work with Divergent Convergent is making a difference. Rachel also opens up about her own experiences with finding her true identity, avoiding burnout, and shifting from a corporate job to running her own business. In this episode, Rachel shares her thoughts on creating inclusive work environments, the challenges of traditional corporate settings, and the importance of community support.Key Moments13:41 Impact of Inclusive Marketing26:34  Building Authentic Friendships35:47 Mentor's Advice: Pay It Forward47:35 Remote Work and InclusionConnect with Rachel LowensteinLinkedIn: https://www.linkedin.com/in/rachel-lowenstein-49431a38Instagram: https://www.instagram.com/rachelissan/?hl=en Divergent Convergent: https://parsnip-tetra-f2ny.squarespace.com/ 

"The journey of self-acceptance is ongoing and deeply personal."Jennifer Gasner, author of *My Unexpected Life: Finding Balance Beyond My Diagnosis*,shares her journey of self-acceptance and understanding of her own identity. She explores the importance of supportive workplaces, the power of tell your own story, and addressing misconceptions about disability.Jennifer also highlights her personal growth in accepting help and fostering inclusivity. Her story is a powerful testament to self-acceptance, resilience, and the push for a more inclusive world, providing guidance for anyone navigating their own journey.Timestamps0:00 Jennifer Gasner's Story 10:45 Finding Balance20:30 Embracing Change30:00 Breaking Barriers45:15 Everyday Triumphs55:00 Redefining Strength1:05:00 Looking ForwardConnect with Jennifer GasnerLinkedIn: https://www.linkedin.com/in/jennifer-gasner-4b1aaa50/ Website:https://jennifergasner.com/ My Unexpected Life by Jennifer Gasner: https://www.amazon.com/My-Unexpected-Life-Finding-Diagnosis/dp/B0CCCPG1ZJ 

Author and Activist, Lauren Melissa, shares a powerful story of resilience and creativity. Diagnosed with autism in her twenties, Lauren Melissa turned the challenges of the COVID-19 pandemic into an opportunity, hand-writing a novel that was later accepted by Bold Strokes Books. Based in New York City, she passionately advocates for the representation of queer, BIPOC, and disabled individuals in fiction, bringing to life diverse, multiracial, neurodivergent, and queer characters. Her journey is a powerful testament to the strength found at the intersections of identity and creativity.Timestamps08:27 Getting Into Writing16:03 Having Relatable Characters in Fiction21:16 Portraying Neurodiversity in Fiction 25:09 Getting Published As An Independent Publisher33:34 Advocacy on Autism, Race, and Queerness44:12 Social Expectations, Codependence, and Autistic IdentityConnect with Lauren Melissa EllzeyLinkedIn: https://www.linkedin.com/in/laurenmellzey Website: https://laurenmelissaellzey.com/ 

"I don't concern myself with what they get wrong. I like to just show up as myself and then let any preconceived notion, if there is any, flow like, float away”Oliver Scheier, is a 19-year-old filmmaker, artist, and sophomore in college. Oliver discusses his approach to authenticity in both his work and personal life. He shares insights on his short film "Read a Page," his journey as a young artist, and how he navigates the perceptions of others.Key Moments00:00 Embracing individuality13:01 Life-changing question15:12 Gaelynn Lea's inspiring violin journey23:54 Grateful for diverse talent support26:59 Joy in directing, beyond acting37:43 University program: ADHD, autism support49:50 Educators' role in accessibilityConnect with  Oliver ScheierWebsite: https://news.tulane.edu/news/tulane-freshman-muscular-dystrophy-finds-joy-and-fulfillment-campus Read a Page: https://www.youtube.com/watch?v=h9SfkFG3lL4 

Your co-hosts Erin & Lily have a special in-person segment for the first time ever on the podcast. They Kick things off by discussing the significance of Disability Pride Month and the joys of creating content together as friends who are both disabled.They also discuss some light-hearted topics like newfound interests—Erin's evolving relationship with pizza and Lily's dive into the world of fantasy books, including some great disability representation in certain titles. They get real about the power of virtual friendships, especially within the disability community, and how these connections help navigate their experiences authentically.Timestamps09:19 Embracing wheelchair for comfort21:02 Public perception and aging with disability26:21 Masculinity, ableism, and disability31:51 Susan B. Anthony's advocacy35:09 Government, ableism, and organizing change48:18 Theater accessibility solutions52:19 Budget pushback on accessibility59:55 Theater, friendships, and communityConnect with Lily NewtonLinkedIn: https://www.linkedin.com/in/lily-newton-3b0b5b229Website: https://www.easterseals.com/Connect with Erin HawleyLinkedIn: https://www.linkedin.com/in/erinhawley2Website: https://www.easterseals.com

In this episode, hosts Erin and Lily interview Jenna Bainbridge, an actress, singer, and accessibility advocate. Jenna shares her journey as the first wheelchair user to perform in a new musical on Broadway, debuting in the award-winning "Suffs." She discusses her career and daily life as an ambulatory wheelchair user, challenging misconceptions and emphasizing the importance of accessibility and personal freedom.Jenna explains how her wheelchair enhances her ability to navigate New York City, offering independence in an often inaccessible environment. She highlights the spectrum of capabilities and needs, breaking down binary views of disability. Her role in "Suffs" underscores the power of collective activism and the importance of every action in contributing to a larger movement.The episode also touches on Jenna's work with Consultability, a consulting company she co-founded to make theater spaces more accessible. Her experiences offer a rich discussion on the intersections of art, disability, and advocacy, providing listeners with a deeper understanding of inclusivity's importance in all areas of life.Timestamps00:00 Wheelchair allows freedom and less exhaustion.09:19 Embracing wheelchair use for everyday comfort.12:06 Navigating public perception of disability is exhausting.21:02 Disability euphemisms conceal the reality of aging.26:21 Masculinity and ableism 31:51 Susan B. Anthony's advocacy, protests, and power.35:09 Messy government, ableist viewpoints, organizing for change.43:06 Inclusion in SUFFs provides representation for disabilities.48:18 Theater accessibility efforts focus on practical solutions.52:19 Budget pushback about accessibility improvements. 59:55 Theater creates close friendships and community quickly.01:01:42 Interview wrap-up Connect with Jenna BainbridgeInstagram: https://www.instagram.com/bainbridgejenna/?hl=enWebsite: https://www.jennabainbridge.com/Suff the Musical: https://suffsmusical.com/

Your co-hosts Erin & Lily have a special segment today called “Just Between Us!” Today's episode is all about the importance of Disability Pride Month. They share their thoughts on why it's crucial to celebrate being disabled and not just focus on ableism. Erin & Lily also discuss how pride in their identities as disabled people and as friends empowers them. We hope you enjoy today's real (and unfiltered) episode. Happy Disability Pride Month!Timestamps04:06 Claiming pride in queer and disabled identity.06:46 I understand the need to educate, but...13:14 Navigating disability pride in online content.14:12 Discussion on sharing disabled experiences and challenges.18:06 Experience of cultural recognition.21:38 Embracing disability pride, simplifying routines for ease.28:25 Being proud of oneself fights ableism.Connect with Lily NewtonLinkedIn: https://www.linkedin.com/in/lily-newton-3b0b5b229Website: https://www.easterseals.com/Connect with Erin HawleyLinkedIn: https://www.linkedin.com/in/erinhawley2Website: https://www.easterseals.com/

Amanda McGrory, a four-time Paralympian and seven-time Paralympic medalist shares her journey as an elite athlete. She addresses the pervasive stereotypes and misconceptions surrounding disabled athletes and how they are often misrepresented in the media.Throughout the conversation, the importance of authentic representation in media and sports is highlighted, focusing on the significance of community support. She discusses her struggles with eating disorders and finding community through adaptive sports.Amanda discusses the critical need for authentic representation in sports and media, highlighting how real portrayals can create a more inclusive society. Her insights reveal that being a disabled athlete is just one facet of her multifaceted identity. Amanda advocates for a broader recognition of the everyday achievements of people with disabilities without sensationalism.Erin, Lily, and Amanda discuss disability pride and the power of community. Amanda shares about the lack of control she felt as a child and how that led to her struggles with eating. They talk about the power of finding community with other disabled people and how finding adaptive sports brought Amanda the community that led her to her own healing and sense of pride in her identity. Timestamps08:53 Amanda's athletic career trajectory.12:19 Athletes and inspiration are both complex issues.19:21 Realizing potential through disability and the inspiration narrative.24:55 The harm of overcoming narratives, Disability Pride Month.31:14 Amanda's unexpected career in broadcasting.34:12 Lived experience is crucial for understanding disability.39:15 Amanda's experience struggling with eating, finding support, and control.48:57 Airline staff often disregard the needs of disabled passengers.54:37 The importance of disability history.57:16 University of Illinois Galesburg campus program summary.01:02:18 Emphasizing the importance of accessibility, University of Illinois AccessibilityConnect with Amanda McGroryLinkedIn: https://www.linkedin.com/in/amanda-mcgroryInstagram: https://www.instagram.com/alittlechipped/?hl=enWebsite: http://www.amandamcgrory.com/

In this episode, Chelsea Bear, a content creator and disability advocate, shares her experiences and challenges as a lifestyle influencer. Chelsea highlights the importance of embracing her disability wholeheartedly and the sense of community and validation it brings. She discusses how Disability Pride Month encourages individuals to own their disabilities proudly, even on tough days.The co-hosts Erin and Lily resonate with Chelsea's experiences, sharing their struggles and triumphs in accepting their disabilities, while emphasizing the transformative power of community and shared experiences.The episode showcases Chelsea's impactful transition from a public relations professional to a dynamic social media advocate. Her authentic and organic approach to content creation, driven by personal stories and unfiltered passion, sets her apart. Chelsea candidly discusses the pressures of being a disability advocate and the balance between addressing systemic issues and sharing her narrative.Timestamps00:00 Intros and Audio Descriptions03:39 Addressing assumptions about living with physical disability.08:24 PR career taught communication and brand values.11:45 Creating social content to connect and share.15:41 Pressure to advocate for disabilities in lifestyle.17:29 Learning journey, advocacy, spread awareness, disability, daily impact.20:34 Discussion on disability experience and authenticity concern.24:25 Welcoming community addressing accessibility and disabilities.29:20 Accepting disability empowers connection and self-worth.30:50 Taking ownership of identity leads to pride.36:38 Social media expanded my disability community connections.38:29 Social media can connect and empower people.42:37 Learning to navigate health challenges with openness.45:53 Medical schools need to be more inclusive.49:56 Embracing disability transformed my life positively.Connect with Chelsea BearLinkedIn: https://www.linkedin.com/in/chelseabear/ Instagram: https://www.instagram.com/realchelseabear/?hl=en Website: https://chelseabear.com/ 

In this episode, Cory shares his experiences exploring the world as a wheelchair user, from group trips to international destinations to navigating the challenges of air travel accessibility. Learn about Cory's blog, Curb Free with Cory Lee, and its company non-profit, The Curb Free Foundation, which funds dream trips for wheelchair users. Discover practical tips on accessible travel planning, insights on preparing for travel obstacles, and the importance of building a strong community for people with disabilities. Cory also talks about his children's books that feature characters with disabilities, aiming to educate and promote inclusivity among young readers. Don't miss hearing Cory's positive travel experiences and the joy of accessible tourism. Timestamps00:00 Cory's work includes a children's book and foundation.03:34 Public disregard for me becomes increasingly unsettling.09:24 Excited traveler faces job rejection, plans trip.10:41 Lack of travel info inspired Curb Free with Cory Lee blog14:34 Launched the Curb Free Foundation in 2022.17:41 Promote travel to more accessible destinations.23:04 Book promotes wheelchair travel and representation for children.24:24 Children's books shape perception and combat ableist stereotypes.29:40 Wheelchair broke, duct taped, urged DOT report.32:24 Air travel for wheelchair users is improving.34:17 Switzerland trip with incredible accessibility experiences.38:15 Wheelchair user plans trips 6-12 months ahead.40:14 Double-sided Velcro and Able Sling improve transfers.45:12 Community brings joy and understanding to members.47:18 Advocate for visibility and living full lives.51:30 Travel insurance with preexisting conditions saves money.Connect with Cory LeeLinkedIn: https://www.linkedin.com/in/cory-lee/Instagram: https://www.instagram.com/curbfreecorylee/?hl=enWebsite: https://curbfreewithcorylee.com/

In today's episode, we have Spencer West! From discussing the challenges of accessing queer spaces and nightlife to setting boundaries as a disabled content creator, this conversation sheds light on pivotal issues affecting the LGBTQ+ and disabled communities. Spencer shares his personal experiences, advocacy work, and the role of social media in promoting awareness.Don't miss this engaging episode with Spencer West!Timestamps00:00 Spencer West: Keynote speaker, activist, trailblazer, author.06:00 Navigating intersectional identities and privacy boundaries on TikTok.12:47 The importance of sharing disabled experiences in media.16:24 Relate stories to others, especially healthcare workers.17:17 Sharing personal stories, lessons, and avoiding inspiration porn.20:41 Learning boundaries from an older mentor, embracing self.26:46 Struggles with queer identity in nightlife venues.28:16 Toronto has organizations creating accessible spaces.36:03 Creating regular content as a revenue stream.38:04 Grateful for age and experience in authenticity.43:23 Learning about disability justice, confronting internalized ableism.46:02 RuPaul's reminder: love yourself, love others.48:56 Recognition of mutual support in personal relationships.51:34 Privilege of walking, trouble with wheelchair damage.54:49 Agreement on disability visibility through social media.57:35 Celebrate LGBTQ+ and disability pride this month.Connect with Spencer West Instagram: https://www.instagram.com/spencer2thewest/?hl=enTikTok: https://www.tiktok.com/@spencer2thewest?lang=en

In this episode, hosts Lily Newton and Erin Hawley sit down with actor, model, content creator, and CEO of the lifestyle brand Live Solo,  Lolo Spencer. Known for her advocacy work and trailblazing efforts in changing the narrative around disability, Lolo shares her incredible journey and vision for a more inclusive world.We also explore the broader implications of representation in Hollywood and the importance of community building, with Lolo emphasizing the need for disabled actors to be cast in diverse roles. Tune in and be part of the movement towards a more inclusive society!Timestamps00:00 Lolo Spencer, actor and disability advocate, succeeds.03:26 Misconceptions about ambulatory wheelchair users' disabilities.07:51 Difficulty accessing doctor's office due to age.10:48 Feeling judged for being young and able.14:03 Friends collaborate, enjoy and resonate with humor.18:28 Importance of clear communication for disability accommodations.19:38 Production must fully support disabled talent's needs.25:47 Enhancing audience experience through laughter and enjoyment.26:34 Season's exciting trailer, surprisingly, accessible to all.30:46 Creating community through inclusive lifestyle brand blog.34:34 Bringing community together through events and activities.38:19 US healthcare detrimental; bias against black women.40:51 Questioning the healthcare system's dismissiveness towards accessibility.45:15 Lily searching for EDS diagnosis and medical diversity.47:18 Collaboration of traditional and alternative medicine beneficial.50:55 Community ties into information sharing and health.55:08 Attitude towards disability needs to change.57:25 Lolo praised for support and collaboration efforts.Connect with Lolo SpencerInstagram: https://www.instagram.com/itslololove/Visit Live Solo: https://www.livesolo.

In today's episode, Erin and Lily are joined by Tina Friml, a New York-based comedian who shares her unique experiences navigating the comedy scene. We'll explore the misconceptions about disabilities, the role of humor and radical self-acceptance, and turning casual ableism into comedy gold.From the sometimes illogical things Tina can and cannot do, to her decision to only perform in ADA accessible venues, this episode is packed with insights.Get ready to tune in, laugh, and learn as we welcome you to another episode of Everything You Know About Disability is Wrong. Let's get started!Timestamps00:00 Disabled with mild cerebral palsy needing accommodations.09:39 Challenges of being labeled and misunderstood.10:56 Navigating disability and others' perceptions and actions.19:37 Comedy often exploits societal expectations for jokes.25:25 Some struggle to understand disabilities, affecting interactions.29:18 Prioritizing ADA accessibility at event venues promoted.34:04 Struggling to find accessible venues in various cities.43:59 Unexpectedly positive experience appearing on Jimmy Fallon.50:27 Easterseals podcast highlights equity, access, and accommodation.51:41 Traveling alone, finding increasing airport accommodations.01:00:45 Comedy community support, challenges of being underestimated.01:02:22 Disability can be both a benefit and drawback.Connect with Tina Friml:Instagram: https://www.instagram.com/tinafriml/?hl=en

In today's episode, your hosts Lily Newton and Erin Hawley have a heartfelt conversation with our guest, Rawan Tuffaha. Rawan is the lead singer of the ASD Band, a group composed entirely of autistic musicians, which shines a light on talent within the autistic community. Besides her music career, Rawan is an advocate for autism acceptance and disability employment, challenging misconceptions and pushing for more inclusive practices.Join us as we delve into Rawan's journey, from forming the ASD Band to her academic pursuits at Metal Works Institute, her experiences with the documentary about her band, and her thoughts on the misconceptions people often have about individuals on the autism spectrum. We'll also hear about her challenging yet rewarding experiences managing school, autism, and her music career, including her exciting upcoming album, "Almost Flawless."This episode is not only an exploration of Rawan's personal and professional life but also a broader discussion of the challenges faced by individuals with disabilities as they transition into adulthood, particularly in accessing employment and continuing to receive support.Stay tuned as we celebrate the exceptional contributions of individuals like Rawan and discuss how organizations like Easterseals are paving the way for full access, equity, and inclusion for people with disabilities and their families.Timestamps00:00 Podcast featuring Rawan Tuffaha, lead of ASD Band.04:10 Documentary creation, album release amidst COVID-19 impact.08:18 Performed with Roger Hodgson, formed a band and overcame setbacks.11:23 Started playing the toy piano and learned by ear.14:41 Honest, raw music conveying autistic experience powerfully.19:44 Gratitude for positive influences and values learned.22:28 Struggle with identity and trust in popularity.25:32 Teenagers realize the importance of loyal, caring friends.29:47 Passion for the Jonas Brothers, autism acceptance.31:58 Struggling with travel plans, rehearsals, and charity.35:04 Understanding the travel process with help from family.38:26 Autism diagnosis at 1, received varied support.40:57 Seeking support in university, aiming for success.46:00 Struggles finding a job as an autistic person. Need for inclusion and understanding.49:51 Multitasking autism advocate defies stereotypes with grace.Connect with Rawan TuffahaInstagram: https://www.instagram.com/rawansinger/?ref=tablehopper.com

Navigating Independence and Relationships: Subodh and Aarti's Journey on EYK | Season 3, Episode 2Welcome to a special episode of Everything You Know, presented by Easterseals. Today, we've got a truly enlightening conversation lined up with our guests, Subodh Garg and his sister, Aarti Garg. Subodh, a charismatic individual diagnosed with autism at the age of 3, shares his journey towards independence, his exceptional memory, and his experiences with dating and social interactions. Aarti, who plays a crucial role in managing Subodh's social engagements and safety online, provides insight into their sibling dynamics and the support systems that help Subodh navigate his challenges and aspirations.In this episode, we delve into the importance of the diverse representation of autism in media, the critical role of technology in improving communication skills, and the universal struggles with dating and social skills. Subodh also discusses his participation in the show Love on the Spectrum, his employment goals in accounting, and his passion for travel. Join hosts Erin Hawley and Lily Newton as they explore these topics and more, offering a broader perspective on neurodiversity and the common human desires for love and connection. Stay tuned as we challenge the misconceptions about autism and celebrate the diverse capabilities and aspirations of individuals on the spectrum.Timestamps0:00 - Introduction to today's episode with hosts Erin Hawley and Lily Newton, featuring guests Subodh and Aarti Garg.2:45 - Subodh Garg discusses his journey towards independence and his aspirations in accounting.5:20 - Exploring the sibling dynamics between Subodh and Aarti Garg, including the misconceptions about their relationship.7:40 - Aarti Garg talks about her role as a manager rather than a caretaker in Subodh's life.10:15 - Challenges of making and maintaining friendships as adults, emphasized by Subodh's experiences.13:30 - Subodh's take on his participation in Love on the Spectrum and developing his dating skills.18:29 - The impact of "Love on the Spectrum" on Subodh's life, as discussed by Aarti.21:10 - Conversation about the universal struggle with dating and social skills.24:05 - Subodh and community building: From online dating to maintaining connections with the show's cast.27:50 - The transportation hurdles and Subodh's use of Access, a paratransit service.30:16 - Subodh's employment ventures at Teledelis and Insight, and his educational goals.33:45 - Lily Newton and Aarti Garg critique the representation of disability in mainstream media and specific TV shows.37:12 - The role of digital content in Subodh's life, including his Instagram engagement and travel posts.40:40 - Detailing the disability readathon initiative and its significance, shared by Erin Hawley.43:28 - Reflections on maintaining friendships amidst life changes and busy schedules.45:35 - Subodh's exceptional memory skills and affinity for recalling specific dates and personal milestones.49:20 - Deep dive into Subodh's past therapies, ongoing supportive services, and aspirations for travel.52:15 - Discussion on the broader spectrum of autism and the personal ambitions of individuals with autism.55:00 - Closing thoughts, upcoming initiatives, and a thank you to Subodh and Aarti Garg for their participation.57:10 - Call to action for disability advocacy and an invitation to listen in to future episodes presented by Easterseals.Connect with Subodh GargInstagram: https://www.instagram.com/traveling_subodh/?hl=enConnect with Aarti GargInstagram: https://www.instagram.com/aartipaarty/?hl=en

Join our hosts, Lily Newton and Erin Hawley, as they sit down with the riveting Gaelynn Lea, whose voice and violin strings resonate with the force of change, challenging our perceptions of ability and accessibility.Imagine being told that your dream career is not designed for someone like you. Now picture breaking that mold and redefining what is possible. Gaelynn Lea did just that. Born with a physical disability, Gaelynn transformed the way the violin is played, gripping it like a cello. With this twist, she orchestrated her way to stardom after winning NPR's Tiny Desk concert. But her journey is more than a story of musical success it's a powerful narrative of breaking barriers and rewriting the stanzas of inclusivity.Tune in, and you may just find that the key to unlocking true inclusivity and happiness lies within the stories that defy silence and demand to be heard.Key Moments10:39 Disability is more than just assumptions.12:18 Name experiences, avoid overgeneralizing, and amplify underrepresented voices.27:01 Rant on marriage inequality and divorce advice.30:49 Advocating for disabled rights and innovation.35:18 Teachers adapt instruments without needing deep disability knowledge.43:41 Importance of owning your work and feelings.46:09 Discovering hidden desires through writing memoirs.54:48 Recognize the knowledge gap, educate, and make events accessible.56:47 Advocate for accessibility and supporting accessible businesses.01:01:52 Inappropriate discussion led to realization and job.01:09:53 Disabled community excels; companies should embrace inclusion.Connect with Gaelynn LeaInstagram: https://www.instagram.com/gaelynnlea/Website: https://violinscratches.com/

In this exciting episode, Jameela Jamil, actress, activist, and television host, shares how she began to understand her own disability while navigating the entertainment industry. We're working through shame, making our own rules, and creating inclusive spaces together to break barriers. Are you in?

Erin and Lily are joined by award-winning recording artist, Youtuber and disability advocate Lachi. Lachi talks about her DEI work in the music industry and the nuances of ableism as it relates to trauma, class, race, and gender.

Collette Divitto, founder and CEO of Collettey's Cookies, turned her love for baking into a successful business where half of the staff has a disability. She joins hosts Erin and Lily to chat about her successes, life as an entrepreneur, and the stigma many disabled people face while building their careers.

As a fashion model, actress, and disability rights advocate, Jillian has a lot going on! Throughout her career, she has encountered comments from strangers about her disability. Learn about how she became inspired by those experiences to create safe, inclusive spaces on social media.

Lindsey Rowe Parker, author of the children's book, “Wiggles, Stomps, and Squeezes Calm My Jitters Down,” joins the podcast to discuss why disability representation is important in children's literature. This episode also explores the often challenging road toward self-acceptance.

Kaelynn Partlow, autistic advocate and Senior Therapist at Project Hope Foundation, Inc., was featured on the Netflix series called, “Love on the Spectrum.” She joins hosts Erin and Lily to chat about neurodiversity, social media advocacy, and more!

In this episode, we talk about disability pride with Vilissa Thompson, who is celebrating the 10 year anniversary of her work!

In this special episode, hosts Erin and Lily bring on their romantic partners to chat about their love origin stories, dealing with conflict as multiply-disabled couples, and the importance of strong communication in a relationship.

Dom Evans (they/he) is a filmmaker, activist, public speaker, and writer. They dig deep into discussions with Erin and Lily about health care and mental health. Plus, a live declaration of love!

Author of Demystifying Disability, Emily Ladau, discusses her experiences with ableism and invasive questions on dating apps, and dealing with breakups. Erin and Lily join Emily in sharing their cringiest first dates and how to know when love is real.

Erin and Lily are in conversation with comedian, actor, and founder of the Easterseals Disability Film Challenge, Nic Novicki. Nic talks about being a father and husband while working in Hollywood, and how your priorities shift when becoming a parent. The group discusses authentic disability representation in movies, popcorn betrayal, and a love story so sweet that it ended up on the big screen!

Erin and Lily speak with award-winning filmmaker, musician, and creator of the Everything You Know About Disability is Wrong theme song, Jennifer Msumba. Jennifer shares her experiences in unrequited love as an autistic woman. The three women chat openly about the awkwardness of dating, being true to yourself, and farts!