Defect in the structure of the heart that is present at birth
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In this Make a Difference series episode of the She Believed She Could Podcast, Allison Walsh sits down with Noelle Schnacky, Miss Florida's Teen 2025 and founder of Hope for Heart Kids, a 501(c)(3) nonprofit dedicated to supporting children and families impacted by congenital heart disease (CHD). Inspired by the memory of her cousin Tyler, Noelle has turned personal heartbreak into national impact, raising awareness, funding research, and expanding hospital partnerships to improve the quality of life for heart families. She opens up about the journey of starting a nonprofit at 14, building community-driven campaigns, writing children's books to empower families, and using her platform to inspire confidence and faith in the next generation.Whether you're a parent, entrepreneur, or changemaker, this episode will leave you encouraged to follow your calling, no matter your age.✨ This series is proudly sponsored by AdventHealth for Women and Be a Mindleader.Memorable Moments“I had a dream, and I knew my passion and purpose were way greater than any excuse I could come up with.”On building partnerships: “I started at the Chamber of Commerce—and from there, it skyrocketed.”A heart family's testimony: “We've been reading your books every single night, and they're helping us get through having a congenital heart defect.”“CHD is 60 times more common than childhood cancer, but hardly anyone talks about it.”“If you really want to see God move in your life, it's the quiet place—what you're doing in your alone time—that prepares you for where He wants you to go.”“Hurt people hurt people. Instead of seeing haters as attackers, I see them as people I may be able to minister to.”
Variants in genes tied to both conditions derail the formation of cilia, the tiny hair-like structure found on almost every cell in the body, a new study finds.
Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper on Incidence of Stroke in Adults With Congenital Heart Disease: A Systematic Review and Meta-Analysis.
CardioNerds (Dr. Claire Cambron and Dr. Rawan Amir) join Dr. Ayan Purkayastha, Dr. David Song, and Dr. Justin Wang from NewYork-Presbyterian Queens for an afternoon of hot pot in downtown Flushing. They discuss a case of congenital heart disease presenting in adulthood. Expert commentary is provided by Dr. Su Yuan, and audio editing for this episode was performed by CardioNerds Intern, Julia Marques Fernandes. A 53-year-old woman with a past medical history of hypertension visiting from Guyana presented with 2 days of chest pain. EKG showed dominant R wave in V1 with precordial T wave inversions. Troponin levels were normal, however she was started on therapeutic heparin with plan for left heart catheterization. Her chest X-ray revealed dextrocardia and echocardiogram was suspicious for the systemic ventricle being the morphologic right ventricle with reduced systolic function and the pulmonic ventricle being the morphologic left ventricle. Patient underwent coronary CT angiography which confirmed diagnosis of congenitally corrected transposition of the great arteries (CCTGA) as well as minimal non-obstructive coronary artery disease. Her chest pain spontaneously improved and catheterization was deferred. Patient opted to follow with a congenital specialist back in her home country upon discharge. US Cardiology Review is now the official journal of CardioNerds! Submit your manuscript here. CardioNerds Case Reports PageCardioNerds Episode PageCardioNerds AcademyCardionerds Healy Honor Roll CardioNerds Journal ClubSubscribe to The Heartbeat Newsletter!Check out CardioNerds SWAG!Become a CardioNerds Patron! Pearls- A Case of Congenital Heart Disease Presenting in Adulthood Congenitally Corrected Transposition of the Great Arteries (CCTGA) is a rare and unique structural heart disease which presents as an isolated combination of atrioventricular and ventriculoarterial discordance resulting in physiologically corrected blood flow. CCTGA occurs due to L looping of the embryologic heart tube. As a result, the morphologic right ventricle outflows into the systemic circulation, and the morphologic left ventricle outflows into the pulmonary circulation. CCTGA is frequently associated with ventricular septal defects, pulmonic stenosis, tricuspid valve abnormalities and dextrocardia. CCTGA is often asymptomatic in childhood and can present later in adulthood with symptoms of morphologic right ventricular failure, tricuspid regurgitation, or cardiac arrhythmias. Systemic atrioventricular valve (SAVV) intervention can be a valuable option for treating right ventricular failure and degeneration of the morphologic tricuspid valve. notes- A Case of Congenital Heart Disease Presenting in Adulthood Notes were drafted by Ayan Purkayastha. What is the pathogenesis of Congenitally Corrected Transposition of the Great Arteries? Occurs due to disorders in the development of the primary cardiac tube Bulboventricular part of the primary heart forms a left-sided loop instead of right-sided loop, leading to the normally located atria being connected to morphologically incompatible ventricles This is accompanied by abnormal torsion of the aortopulmonary septum (transposition of the great vessels) As a result, there is ‘physiologic correction' of blood flow. Non-oxygenated blood flows into the right atrium and through the mitral valve into the morphologic left ventricle, which pumps blood into the pulmonary artery. Oxygenated blood from the pulmonary veins flows into the left atrium and through the tricuspid valve to the morphologic right ventricle, which pumps blood to the aorta. Compared with standard anatomy, the flow of blood is appropriate, but it is going through the incorrect ventricle on both sides. Frequent conditions associated with CCTGA include VSD, pulmonic stenosis and dextrocardia
Send us a textMonique Kemp's world turned upside down when her unborn son was diagnosed with an interrupted aortic arch at seven months of pregnancy. What followed was a harrowing journey through six open-heart surgeries, months of hospitalization, and the birth of something unexpected – a powerful vision for supporting other families facing similar challenges.From those early days sitting beside her newborn's hospital bed to founding Heart of Hope-Cape Town, Monique shares with raw honesty how she transformed her personal pain into purpose. Her support group, now running for 12 years, fills a critical gap she identified during those long hospital stays – medical staff trained to heal bodies, not necessarily to hold space for parents' emotional trauma.The conversation takes a dramatic turn when Monique reveals how her maternal instinct potentially saved her son's life. As Daniel entered his teen years, his complaints of pain were repeatedly dismissed as psychological by doctors who had known him since infancy. Only after switching to a new pediatrician did they discover his heart conduit had grown down into his stomach, displacing organs and causing genuine physical distress. This experience highlights a dangerous blind spot in CHD care–the critical transition period between ages 10-21 when patients are most likely to fall through the cracks.Perhaps most eye-opening is Monique's perspective on global CHD care disparities, comparing attitudes toward heart interventions between North and South India, and advocating passionately for what the CHD community needs most: to become "one voice" as prominent as the condition itself, which remains the number one birth defect worldwide.Whether you're a heart parent seeking community, a medical professional wanting deeper insight into patient experiences, or simply someone interested in how personal tragedy can transform into powerful advocacy, this conversation will leave you understanding why the CHD journey requires both medical expertise and emotional support that only other heart families can truly provide.Links Mentioned in the Episode:Top 20 Congenital Podcasts: https://podcast.feedspot.com/congenital_disorders_podcastsBaby Hearts Press: https://www.babyheartspress.comSupport the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
In this episode of Nutrition Pearls: the Podcast, co-hosts Megan Murphy and Jen Smith speak with Megan Horsley on her involvement with an intensive tube feed weaning program. Megan is a pediatric dietitian at Cincinnati Children's Hospital Medical Center. She has 18 years of experience in pediatrics with a focus in cardiology and currently practices as a Lead dietitian as well as a cardiac float, serving all areas of cardiology (the Critical Cardiac Intensive Care Unit, the Acute Care Cardiology Unit and Outpatient Cardiology). Her most recent work has involved establishing a tube wean program in 2020 for heart patients which focuses on optimizing oral skills and getting them safely off their feeding tube.She is a Certified Nutrition Support Clinician and in addition maintains her Certification as a Specialist in Pediatric Nutrition. She is involved in many projects, research, and quality improvement work, including the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC), the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) and the Pediatric Cardiac Intensive Care Society (PCICS). She has also served as a board member of the Congenital Heart Alliance of Cincinnati since 2017 and is a member of the Prolacta Clinical Advisory Board (PCAB) since 2019. Megan has eighteen years of professional practice in pediatric nutrition and twenty-one years of personal experience as a heart mom herself. She plans on continuing to concentrate her efforts on improving the nutritional care, experience and outcomes for all children affected by congenital heart disease.Nutrition Pearls is supported by an educational grant from Mead Johnson Nutrition.Resources:Tool Kit: NPC-QIC Tube Weaning — NPC-QICKaskie, S., Horsley, M., & Marcuccio, E. (2024). Experiences in Tube Weaning Children with Congenital Heart Disease and Oral Feeding Aversion. Pediatric Cardiology. https://doi.org/10.1007/s00246-024-03515-8Wong, J., Loomba, R., Allen, K. Y., Chan, T., Coolidge, N., Del Grippo, E., Horsley, M., Slater, N., Spader-Cloud, M., Steltzer, M., & Marcuccio, E. (2024). Structured Tube Weaning Using the Hunger Provocation Method in Infants with Single Ventricle Heart Defects: A Multicenter Study. Pediatric Cardiology. https://doi.org/10.1007/s00246-024-03558-xHorsley, M., Hill, G. D., Kaskie, S., Schnautz, M., Brown, J., & Marcuccio, E. (2022). Evaluation of an Outpatient and Telehealth Initiative to Reduce Tube Dependency in Infants with Complex Congenital Heart Disease. Pediatric Cardiology, 43(7), 1429–1437. https://doi.org/10.1007/s00246-022-02864-6Weaning from a feeding tube in children with congenital heart disease: A review of the literature: www.sciencedirect.com/science/article/abs/pii/S1058981321000801?via%3DihubCardiology Feeding Tube Wean ClinicProduced by: Corey IrwinNASPGHAN - Council for Pediatric Nutrition Professionalscpnp@naspghan.org
The Belgic Confession (Art. XV) Morning Sermon
Sisters in Loss Podcast: Miscarriage, Pregnancy Loss, & Infertility Stories
Congenital heart disease is a general term for a range of birth defects that affect the normal way the heart works. The term “congenital” means the condition is present from birth. Today's guest was diagnosed with Endometriosis and after many years of fertility treatments including IVF her first child Jasper died in her arms 30 hours after he was born from congenital heart disease. Coping with the grief of child loss at the onset of a global pandemic has made, Jamala Arland passionate about supporting the community for bereaved mothers and normalizing grief through writing and speaking engagements. In todays episode, Jamala shares her journey through endometriosis, infertility, and finding out how her son had congenital heart disease. This episode is for you to listen to if you have battled infertility and infant loss. Become a Sisters in Loss Birth Bereavement, and Postpartum Doula Here Living Water Doula Services Book Recommendations and Links Below You can shop my Amazon Store for the Book Recommendations You can follow Sisters in Loss on Social Join our Black Moms in Loss Online Weekly Grief Support Group Join the Sisters in Loss Online Community Sisters in Loss TV Youtube Channel Sisters in Loss Instagram Sisters in Loss Facebook Sisters in Loss Twitter You can follow Erica on Social Erica's Website Erica's Instagram Erica's Facebook Erica's Twitter
Send us a textWhat happens when you've spent your whole life thinking your heart condition was "fixed," only to discover it's actually a lifelong journey? Elle Pendrick shares this profound revelation that came after her fourth open-heart surgery, forever changing how she understood her congenital heart disease.Born in 1983 with complex CHD in rural Australia, Elle's early years were defined by long journeys to Sydney for medical care. Growing up as the only person with a serious cardiac condition in her small town of Wagga Wagga created an isolating experience—one that shaped her understanding of her own health. The shocking realization at age 21 that her heart disease was not cured but rather a lifelong companion became a turning point in her identity and purpose.Elle takes us through her remarkable transition from viewing CHD as something to hide to embracing it as part of her story. Her evolution into advocacy work led her to help develop Australia's groundbreaking Standards of Care for Childhood Onset Heart Disease, which includes world-first mental health and neurodevelopmental standards. This unified approach shows how Australia's tight-knit CHD community has created comprehensive care models that focus on whole-person wellness rather than just cardiac function.The conversation explores fascinating comparisons between Australian and American healthcare systems, drawing from Elle's recent visit to the United States. Her insights reveal how different funding models, advocacy approaches, and support organizations shape patient experiences despite serving the same medical needs. Elle's perspective offers valuable lessons for anyone interested in healthcare policy and patient advocacy.Most powerfully, Elle describes transforming her medical journey into resources for others. Her book "Your Ultimate Surgery Success Guide" and her platform "Adulting Well" address practical challenges faced by those with chronic conditions—from workplace conversations and financial planning to mental health support. By sharing her expertise on navigating healthcare systems, Elle demonstrates how lived experience becomes a powerful tool for helping others.Join us for this inspirational conversation about resilience, advocacy, and finding purpose through personal challenge. If you're facing a chronic health condition or supporting someone who is, Elle's wisdom offers both practical guidance and heartfelt encouragement.Global ARCH's leadership training opportunity: https://global-arch.org/advocacy-training/ Elle's Book on Amazon: https://www.amazon.com/dp/B0DCV2TCQZElle's Website: https://www.adultingwell.au/Elle's Blog: https://www.adultingwell.au/BlogElle's Instagram: https://www.instagram.com/adultingwell/Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Focus Issue on Digital Health and Congenital Heart Disease
Parenting Leading and Teaching With Emotional Intelligence and Love
Sarah Michelle Boes shares a remarkable story of her career path to nursing as well as some of the struggles along the way. These struggles inspired her multi-million dollar entrepreneurial journey. And, all of this (medicine and education) prepared her to raise a beautiful daughter born with Congenital Heart Disease.
Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper on Glucagon-Like Peptide-1 Agonist Use in Adults With Congenital Heart Disease: Effect, Safety, and Outcomes.
Event Objectives:Review the Historical Progression of Interventional Cardiology in Pediatric and Congenital Heart Disease.Highlight Cutting-Edge Catheter-Based Therapies for Pediatric and Congenital Heart Conditions.Understand Contemporary Catheter-Based Arrhythmia Management Options in Pediatric and Congenital Heart Disease.Claim CME Credit Here!
Opportunities to the IC in the Management of Congenital Heart Disease
A study from The Heart Research Institute has shown that there are thousands more Australians than expected living with Congenital Heart Disease. Senior Researcher on the study Callum Nicholson joins John to discuss the results and their implications. Listen to John Stanley live on air from 8pm Monday to Thursday on 2GB/4BCSee omnystudio.com/listener for privacy information.
Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper on Placental Vascular Malperfusion in Pregnancies With Congenital Heart Disease: A Prospective Comparative Study.
What if turning a personal struggle into a business could not only change your life but also impact countless others? Join us as we chat with the inspiring Sarah Michelle Bose, who transformed her battle with test anxiety into MP Reviews, a thriving educational resource. During the pandemic, Sarah's innovative Life Study Groups provided students with essential guidance and mental health support. As a mother, author, and entrepreneur, her journey from nurse practitioner to successful businesswoman showcases how personal challenges can fuel incredible achievements. In our conversation, Sarah opens up about her strategic journey in the business world, including the successful sale of her company, which was initially just a valuation exercise. Her focus on nursing and mental health extends beyond her business, as evidenced by her impactful donation of $15 million to establish the Bose Family Congenital Heart Institute. Sarah's memoir sheds light on her experiences with obsessive-compulsive disorder, and her activism in mental health and congenital heart disease awareness adds layers to her enduring legacy. Explore Sarah's story and her unwavering commitment to making a difference at sarahmichellebowes.com. Timestamps 00:00:00 - Introduction and Welcome to Business Legacy Podcast 00:00:45 - Sarah Michelle Bose's Background: From Nurse to Entrepreneur 00:02:00 - The Origin of MP Reviews During the COVID Pandemic 00:03:30 - Addressing Test Anxiety and Building Confidence 00:05:00 - Rapid Growth and Success of the Initial Course 00:06:15 - Balancing Roles: Mother, Author, Entrepreneur 00:08:08 - Legacy Through Business and Activism 00:09:00 - The Decision to Sell MP Reviews 00:10:30 - Sarah's Memoir and OCD Diagnosis 00:12:00 - $15 Million Donation and Establishment of Bose Family Congenital Heart Institute 00:13:15 - Activism in Mental Health and Congenital Heart Disease Awareness 00:14:30 - Sarah's Future Goals and Personal Legacy 00:16:00 - Where to Learn More About Sarah Michelle Bose 00:17:00 - Closing Remarks and Gratitude for Listening to the Legacy Podcast Episode Resources: Find out more about Sarah and what she is doing now here: https://sarahmichelleboes.com/ Legacy Podcast: For more information about the Legacy Podcast and its co-hosts, visit businesslegacypodcast.com. Leave a Review: If you enjoyed the episode, leave a review and rating on your preferred podcast platform. For more information: Visit businesslegacypodcast.com to access the shownotes and additional resources on the episode.
Send us a textDouble Jeopardy: A Distinct Mortality Pattern Among Preterm Infants with Congenital Heart Disease.Higgins BV, Levy PT, Ball MK, Kim M, Peyvandi S, Steurer MA.Pediatr Cardiol. 2025 Apr;46(4):939-946. doi: 10.1007/s00246-024-03519-4. Epub 2024 Jun 12.PMID: 38864860 Free PMC article.As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!
Send us a textSimilarities and Differences in the Neurodevelopmental Outcome of Children with Congenital Heart Disease and Children Born Very Preterm at School Entry.Wehrle FM, Bartal T, Adams M, Bassler D, Hagmann CF, Kretschmar O, Natalucci G, Latal B.J Pediatr. 2022 Nov;250:29-37.e1. doi: 10.1016/j.jpeds.2022.05.047. Epub 2022 Jun 2.PMID: 35660491 Free article.As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!
Send us a textDeclining Incidence of Postoperative Neonatal Brain Injury in Congenital Heart Disease.Peyvandi S, Xu D, Barkovich AJ, Gano D, Chau V, Reddy VM, Selvanathan T, Guo T, Gaynor JW, Seed M, Miller SP, McQuillen P.J Am Coll Cardiol. 2023 Jan 24;81(3):253-266. doi: 10.1016/j.jacc.2022.10.029.PMID: 36653093 Free PMC article.As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!
Send us a textIntegrated cardiac care models of neonates with congenital heart disease: the evolving role of the neonatologist.Hamrick SEG, Ball MK, Rajgarhia A, Johnson BA, DiGeronimo R, Levy PT; Children's Hospital Neonatal Consortium (CHNC) Cardiac Focus Group.J Perinatol. 2021 Jul;41(7):1774-1776. doi: 10.1038/s41372-021-01117-3. Epub 2021 Jun 17.PMID: 34140645 No abstract available.As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!
In this episode, we review the high-yield topic Congenital Heart Disease from the Pediatrics section at Medbullets.comFollowMedbullets on social media:Facebook: www.facebook.com/medbulletsInstagram: www.instagram.com/medbulletsofficialTwitter: www.twitter.com/medbulletsLinkedin: https://www.linkedin.com/company/medbullets
Due to advancements in medical and surgical care, the survival of patients with congenital conditions into adulthood has dramatically increased. However, as these individuals transition to adulthood, their unique physiology, chronic complications, and evolving care needs create significant challenges for their management when they are admitted to adult intensive care units (ICUs). This episode will discuss adult congenital disease in the ICU. Dr. Zanotti is joined by Dr. Cameron Dezfulian, a pediatric and adult critical care physician. He is the director of the Adult Congenital Heart Disease Program Development for the Section of Critical Care at Texas Children's Hospital and a faculty member at Cardiothoracic Critical Care at Baylor St. Luke's Medical Center. He is also a Senior Faculty member at Baylor College of Medicine in Houston, Texas. Additional resources: ACC/AHA 2008 Guidelines for the Management of Adults With Congenital Heart Disease. Circulation 2008: https://www.ahajournals.org/doi/pdf/10.1161/CIRCULATIONAHA.108.190690 Special Considerations in Critical of the Congenital Heart Disease Patient. E Neethling, et al. Can J Cardiol. 2023: https://pubmed.ncbi.nlm.nih.gov/36682483/ Management of the Critically Ill Adult with Congenital Heart Disease. WB Kratzert, et al. J Cardiothorac Vasc Anesth 2018: https://pubmed.ncbi.nlm.nih.gov/29500124/ Adults with childhood-onset chronic conditions admitted to US pediatric and adult intensive care units. J Edwards, et al. J Crit Care 2015: https://pubmed.ncbi.nlm.nih.gov/25466316/ Down Syndrome. MJ Bull. N Eng J Med 2020. https://www.nejm.org/doi/full/10.1056/NEJMra1706537 Books and Music mentioned in this episode: The Bible: https://bit.ly/3EK4LL6
Send us a textIn this engaging episode of Heart to Heart with Anna, we dive into the significant strides made in pediatric cardiology, focusing on hypoplastic left heart syndrome (HLHS) and the inspiring journey of dedicated professionals like Dr. Paul Grossfeld. This episode highlights the complex nature of congenital heart disease, exploring not just the technical advancements in surgical techniques and post-operative care, but also the emotional journeys faced by families. Dr. Grossfeld shares powerful stories from his practice, illustrating the deep connections formed between healthcare providers and patients.Listeners will learn about the critical role of early diagnostics and how modern medicine has transformed the fatality rates associated with HLHS. The episode discusses the collaborative efforts across medical disciplines, which lead to innovative treatment and significant improvements in patient outcomes. With a keen focus on the importance of research to address genetic and environmental influences on heart conditions, Dr. Grossfeld emphasizes the need for community support in fundraising and awareness initiatives.As the conversation shifts toward the importance of heart screenings for athletes, listeners will discover how these measures can prevent tragic outcomes and promote healthy practices among young sports enthusiasts. We encourage our audience to reflect on their understanding of pediatric heart health and to become advocates for research and support within the community. Join us in this eye-opening episode that aims not only to inform but to inspire action among listeners who share a commitment to the congenital heart disease community. Subscribe, share, and engage with us to help uplift and empower those affected by these conditions.Here are some helpful links mentioned in this episode:HeartWorks: https://www.webuildhearts.orgDr. Paul Grossfeld's charities: Light the Way: https://radyfoundation.org/get-involved/events/light-the-way/Miracle Makers: https://radyfoundation.org/ways-to-give/fundraise/miracle-makers/Hearts Unite the Globe (HUG): https://www.heartsunitetheglobe.comSupport the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
This special issue of JACC is dedicated to the essential role of cardiovascular surgery in advancing modern cardiology.
This week on Health Matters, as we continue to observe Heart Month, we will explore the role that genetics play in heart health.Understanding your family history of cardiovascular health is essential. In fact, about 30% of heart disease can be linked to family history. We speak with Dr. Jessica Hennessy, a clinical cardiac electrophysiologist and cardiogenetics expert at NewYork-Presbyterian and Columbia to help break down which heart conditions and risk factors may be inherited. She provides valuable insight on effectively managing heart health, including the importance of lifestyle modifications in preventing heart disease, including for individuals with a genetic predisposition. She also explains who should get genetic testing and what that process looks like.___ Dr. Jessica Hennessey specializes in Cardiac Electrophysiology, with a special focus on Sports & Exercise Cardiology. She practices primarily in New York, NY, and is affiliated with NewYork-Presbyterian/Columbia University Irving Medical Center. Dr. Hennessey graduated from Duke University School of Medicine in 2014, and completed her training at Massachusetts General Hospital, NewYork-Presbyterian/Columbia University Irving Medical Center and NewYork-Presbyterian/Columbia University Irving Medical Center. She is board certified in Internal Medicine, Cardiovascular Disease and Cardiac Electrophysiology. ___ Health Matters is your weekly dose of health and wellness information, from the leading experts. Join host Courtney Allison to get news you can use in your own life. New episodes drop each Wednesday. If you are looking for practical health tips and trustworthy information from world-class doctors and medical experts you will enjoy listening to Health Matters. Health Matters was created to share stories of science, care, and wellness that are happening every day at NewYork-Presbyterian, one of the nation's most comprehensive, integrated academic healthcare systems. In keeping with NewYork-Presbyterian's long legacy of medical breakthroughs and innovation, Health Matters features the latest news, insights, and health tips from our trusted experts; inspiring first-hand accounts from patients and caregivers; and updates on the latest research and innovations in patient care, all in collaboration with our renowned medical schools, Columbia and Weill Cornell Medicine. To learn more visit: https://healthmatters.nyp.org
Welcome to another EAUN edition of EAU Podcasts! In this episode, Ms. Anna Mohammed and Ms. Marta Marchetti introduce the Special Interest Group (SIG) in Endourology and Robotics. Beginning with a brief introduction, Ms. Mohammed and Ms. Marchetti share details of what the SIG hopes to achieve, current developments, and how other nurse specialists can join the group.-----Hosts: Ms. Anna Mohammed – Originally from Trinidad, she graduated from the University of Hertfordshire in 2004. She began her career in theatre, progressing to Theatre Sister with a specialist interest in robotics, gynaecology, and urology. She later trained as a surgical care practitioner, earning a Master's in surgical care practice (urology) in 2015 and qualifying as an independent prescriber in 2021. Passionate about education, she has developed training for theatre staff and surgical practitioners. As Chair of the Endourology and Robotics SIG with the EAUN, she promotes evidence-based practice internationally. She currently works at Cleveland Clinic, London (GB).Ms. Marta Machetti – A skilled nursing professional from northern Italy, Marta graduated in Nursing from the University of Padua in 2013 and earned a Master's in the Surgical Treatment of Congenital Heart Disease in 2015. She advanced from a surgical nurse to a scrub nurse in endourology and robotics, later becoming a surgical assistant. In 2022, she completed a Master's in Surgical Care Practice at Anglia Ruskin University. Her expertise covers all surgical phases, and she is dedicated to staff and patient education. Actively involved in the EAUN, she now works at The Royal Marsden Hospital in Chelsea, a leading cancer treatment and research center.
In this episode Matthew E. Oster, MD, MPH, FAAP, discusses a new algorithm to help screen for CCHD before infants leave the hospital. Hosts David Hill, MD, FAAP, and Joanna Parga-Belinkie, MD, FAAP, also talk to Dylan B. Jackson, PhD, MS, and Rebecca L. Fix, PhD, MS, about how when Black families talk about potential police interactions, children feel less stressed.
Event Objectives:Identify specific subtypes of CHD that are most likely of an identifiable genetic etiology.Evaluate for the common comorbidities associated with the most common cardiovascular genetic diagnoses.Claim CME Credit Here!
Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances discusses a recently published meta-analysis on atherosclerotic risk factor prevalence in adults with congenital heart disease.
Experts in cardiac care at Lurie Children's Hospital want to ensure that children with congestive heart (CDH) disease live the healthiest, happiest lives possible. Lurie Children's unique, comprehensive approach is dedicated to investing in the long-term outcomes of children with CHD. In this episode, Dr. Kiona Allen, attending physician in cardiology and Medical Director of the Regenstein Cardiac Care Unit, discusses key components of a supportive, long-term approach for children with this condition. This includes neurodevelopmental and mental health support, exercise, teaching children to take ownership of their health and helping bridge the gap for those with socioeconomic obstacles.
Focus Issue on Congenital Heart Disease, Heart Failure, and Cardiomyopathies
We have SLPs who niche….and then we have SLPs who super-niche. Meet this week's guest on the podcast, Nashifa Hooda Momin SLP.D, CCC-SLP. Nashifa joins us this week to tell us all about the world of speech-language pathology in the care of infants with congenital heart disease (CHD)…like I said, super-niche! This episode is packed […] The post 349 – Tiny Hearts, Big Impact: The super-niche of congenital heart disease in infants with Nashifa Hooda Momin SLP.D, CCC-SLP appeared first on Swallow Your Pride Podcast.
In this podcast, Dr. Valentin Fuster reviews a groundbreaking study on intraoperative conduction mapping to prevent postoperative atrioventricular block (AVB) in children with complex congenital heart disease. The study highlights how mapping the His bundle during surgery significantly reduces the need for pacemakers, particularly in high-risk populations like those with Heterotaxy syndrome and non-Transposed Great Arteries, offering a promising tool to improve long-term outcomes for these patients.
On todays show I am chatting with a dear friend, Lacey Berlau as she shares what it has been like navigating life with her daughter Charlotte, who has congenital heart disease. Since Charlotte's diagnosis at a 20-week ultrasound, Lacey has faced numerous challenges, including Charlotte undergoing seven open-heart surgeries, the 7th one being just six weeks ago. Through these trying times, Lacey highlights the importance of a strong support system, open communication with her family, especially her son Grant, and a deep reliance on faith. Charlotte's Coupe Club was founded in the Spring of 2023 providing cars and wagons for Texas Childrens Hospital and their patients to enjoy. Donate to Charlotte's Coupe Club To connect with Lacey: Instagram Connect with Courtney: Website~Instagram~Facebook
Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances discusses a recently published original research paper on using blood biomarkers to predict 10-year clinical outcomes in adult patients with Congenital Heart Disease.
Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances discusses a recently published original research paper on characteristics and Outcomes of Adults with Congenital Heart Disease in the Cardiac Intensive Care Unit
Dr. Valentin Fuster evaluates a deep learning model designed to predict left and right ventricular dysfunction and dilation in congenital heart disease patients using ECG and CMR data. The research demonstrated that AI ECG can reliably identify significant cardiovascular issues, though future work should focus on refining thresholds and validating the model across diverse populations and healthcare settings.
Sisters in Loss Podcast: Miscarriage, Pregnancy Loss, & Infertility Stories
After being diagnosed at 18 years old with Polycystic Ovarian Syndrome (PCOS) today's guest was told she was unable to have children. At 31, Chappy Morgan lost a significant amount of weight and was surprised when she found out she was expecting. During an ultrasound she found out her son was sick and was going to suffer from heart problems specifically congenital heart disease. Chappy shares in this episode how she fought for her son Messiah, is healing from child loss, and continues to share Messiah's message through #MessiahStrong Become a Sisters in Loss Birth Bereavement, and Postpartum Doula Here Living Water Doula Services Book Recommendations and Links Below You can shop my Amazon Store for the Book Recommendations You can follow Sisters in Loss on Social Join our Healing Collective Online Support Group Join the Sisters in Loss Online Community Sisters in Loss TV Youtube Channel Sisters in Loss Instagram Sisters in Loss Facebook Sisters in Loss Twitter You can follow Erica on Social Erica's Website Erica's Instagram Erica's Facebook Erica's Twitter
Focus Issue on Interventional Cardiology and Congenital Heart Disease
Commentary by Dr. Valentin Fuster
This month on Episode 60 of Discover CircRes, host Cindy St. Hilaire highlights original research articles featured in the May 10 and May 24th issues of Circulation Research. This Episode also includes a discussion with Dr Sophie Astrof and Dr AnnJosette Ramirez from Rutgers University about their study, Buffering Mechanism in Aortic Arch Artery Formation and Congenital Heart Disease. Article highlights: Tamiato, et al. Pericyte RGS5 in Cardiac Aging Zifkos, et al. PTP1B and Venous Thromboinflammation Ma, et al. NR4A3 in Vascular Calcification Sultan, et al. VEGF-B Induced Coronary Endothelial Cell Lineage
Pediatric Cardiac Surgeon Dr. Thomas Maxey joins Alin and Colby to discuss his career path into the world of pediatric heart surgery. Discussions include pediatric heart transplant, congenital heart disease, transition of care from child to adult, and speaking to children and parents at the bedside.
In this episode, we review the high-yield topic of Intro to Congenital Heart Disease from the Cardiovascular section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets
Commentary by Dr. Valentin Fuster
This week we delve into the world of interventional cardiology and the Fontan when we review a recent report from the Children's Hospital of Philadelphia on the use of the "MitraClip" for the treatment of AV valve regurgitation in the congenital heart patient. Who would be a good candidate for this novel approach? What are the steps in planning or consideration of this technique in a congenital heart patient? How durable is this form of repair? These are amongst the many questions reviewed this week with this week's senior author, Professor of Pediatrics at the Children's Hospital of Philadelphia, Dr. Matthew J. Gillespie. DOI: 10.1002/ccd.30935
For those of you who aren't familiar, my daughter Meadow was born with a severe congenital heart defect last year. Being an advocate for congenital heart disease feels like the most special and important thing I can do as a Heart Mom, and sharing more about this is exactly what I felt called to do this Heart Month. I share some statistics on congenital heart disease that may shock you, and why I'm so invested in giving Heart Babies the very best chance we possibly can. Hear what my daughter's life will look like living with a congenital heart defect, and a poem I wrote about my experience as a Heart Mom. Get full show notes and more information here: https://blog.npreviews.com/heart-month-congenital-disease-mom/
Did you know that February is American Heart Month? We're celebrating by bringing awareness to cardiovascular health disparities, especially those that impact Black women. Joining us for this conversation is Dr. Jayne Morgan, Cardiologist and the Executive Director of the Covid Task Force at the Piedmont Healthcare Corporation in Atlanta, GA. In addition to being published in the areas of Congenital Heart Disease and Interventional Cardiology, Dr. Morgan currently serves as a Board Member of the National Diversity and Inclusion team at the American Heart Association. During our conversation, Dr. Morgan explains what it means to have a healthy heart, how race and gender play a part in the healthcare system's treatment of heart-related issues, and what Black women should be aware of to preserve healthy hearts for a lifetime. About the Podcast The Therapy for Black Girls Podcast is a weekly conversation with Dr. Joy Harden Bradford, a licensed Psychologist in Atlanta, Georgia, about all things mental health, personal development, and all the small decisions we can make to become the best possible versions of ourselves. Resources & Announcements Visit our Amazon Store for all the books mentioned on the podcast. Grab your copy of Sisterhood Heals. Where to Find Dr. Morgan Website Instagram Twitter TikTok YouTube LinkedIn Stay Connected Is there a topic you'd like covered on the podcast? Submit it at therapyforblackgirls.com/mailbox. If you're looking for a therapist in your area, check out the directory at https://www.therapyforblackgirls.com/directory. Take the info from the podcast to the next level by joining us in the Therapy for Black Girls Sister Circle community.therapyforblackgirls.com Grab your copy of our guided affirmation and other TBG Merch at therapyforblackgirls.com/shop. The hashtag for the podcast is #TBGinSession. Make sure to follow us on social media: Twitter: @therapy4bgirls Instagram: @therapyforblackgirls Facebook: @therapyforblackgirls Our Production Team Executive Producers: Dennison Bradford & Maya Cole Howard Producers: Fredia Lucas & Ellice Ellis Production Intern: Zariah Taylor See omnystudio.com/listener for privacy information.
CardioNerds (Dr. Josh Saef, Dr. Agnes Koczo) join Dr. Iva Minga, Dr. Kifah Hussain, and Dr. Kevin Lee from the University of Chicago - NorthShore to discuss a case of unrepaired congenital heart disease that involves D-TGA complicated by Eisenmenger syndrome. The ECPR was provided by Dr. Michael Earing. Audio editing by Dr. Akiva Rosenzveig. A 25-year-old woman with an unknown congenital heart disease that was diagnosed in infancy in Pakistan presents to the hospital for abdominal pain and weakness. She is found to be profoundly hypoxemic, and an echocardiogram revealed D-transposition of the great arteries (D-TGA) with a large VSD. As this was not repaired in childhood, she has unfortunately developed Eisenmenger syndrome with elevated pulmonary vascular resistance. She is stabilized and treated medically for her cyanotic heart disease. Unfortunately given the severity and late presentation of her disease, she has limited long-term options for care. CardioNerds discuss the diagnosis of D-TGA and Eisenmenger's syndrome, as well as long-term management and complications associated with this entity. US Cardiology Review is now the official journal of CardioNerds! Submit your manuscript here. CardioNerds Case Reports PageCardioNerds Episode PageCardioNerds AcademyCardionerds Healy Honor Roll CardioNerds Journal ClubSubscribe to The Heartbeat Newsletter!Check out CardioNerds SWAG!Become a CardioNerds Patron! Case Media - Unrepaired Congenital Heart Disease Pearls - Unrepaired Congenital Heart Disease Early diagnosis of cyanotic congenital heart disease is paramount for treatment and prevention of future complications. Adult congenital heart disease requires a multi-disciplinary team for management in consultation with an adult congenital cardiology specialist. Eisenmenger syndrome is related to multiple systemic complications and has a high rate of mortality. Advancement in PAH medical management can offer noninvasive treatment options for some patients. Transthoracic echocardiography is the cornerstone for diagnosis. Other modalities (e.g. cardiac CT, cardiac MRI, invasive catheterization) can aid in diagnosis and management. Show Notes - Unrepaired Congenital Heart Disease Cyanotic congenital heart disease is often diagnosed in infancy and timely treatment is paramount. As these diseases progress over time, pulmonary over-circulation often pulmonary hypertension (PH), elevated pulmonary vascular resistance, and Eisenmenger syndrome will develop, which preclude definitive treatment. For D-TGA, before PH develops, there are surgical options such as the arterial switch procedure that can treat the disease. Unfortunately, once Eisenmenger syndrome develops, there are multiple systemic complications including hyperviscosity, thrombosis, bleeding, kidney disease, iron deficiency, arrhythmias, etc. that can occur. Management requires a multi-disciplinary team including an adult congenital cardiology specialist, but mortality rates remain high, with median survival reduced by 20 years, worse with complex cardiac defects. Bosentan is a first line treatment for patients with Eisenmenger syndrome, with PDE-5 inhibitors as a second line either by themselves or in combination with bosentan. Data are currently limited for latest-generation PH treatments in Eisenmenger syndrome and further study is still underway. References Ferencz C. Transposition of the great vessels. Pathophysiologic considerations based upon a study of the lungs. Circulation. 1966 Feb;33(2):232-41. Arvanitaki A, Gatzoulis MA, Opotowsky AR, Khairy P, Dimopoulos K, Diller GP, Giannakoulas G, Brida M, Griselli M, Grünig E, Montanaro C, Alexander PD, Ameduri R, Mulder BJM, D'Alto M. Eisenmenger Syndrome: JACC State-of-the-Art Review. J Am Coll Cardiol. 2022 Mar 29;79(12):1183-1198. Earing MG, Webb GD. Congenital heart disease and pregnancy: maternal and fetal risks. Clin Perinatol.