Podcasts about apert

In this week's episode of Inspired Voices, Cath and Adam welcome John and Donna Connett to the studio where they discuss their family's inspiring story and the incredible fundraising efforts they have achieved over the past decade.John and Donna's son Lewis was born with Apert syndrome, a rare genetic disorder which affects around 1 in every 65,000 newborns. The condition fuses bones together and is characterised by malformations of the skull, face, hands and feet. After noticing issues after Lewis' birth, he was referred to Alder Hey, with the family travelling from their home in Yorkshire. Over the past 11 years, Lewis has bravely faced 20 operations and numerous appointments and procedures, becoming a much-loved member of the Alder Hey family. He, along with his family has appeared in Alder Hey Children's Charity's annual Matalan pyjama campaign, and Lewis was even chosen to present Queen Elizabeth II with a bouquet of flowers when she officially opened Alder Hey in 2016.Over the past ten years, John, Donna, Lewis, and Lewis' elder brother Hayden have formed ‘Team Lewis Challenges', and alongside their wider family and friends have taken on numerous challenges and fundraising events, raising an astonishing sum that currently stands at over £67,000. In this podcast, John and Donna speak openly about what inspires them to fundraise for Alder Hey and why others should get involved in fundraising.Listen now!*Episodes of Inspired Voices may feature references to medical proceduresSupport the show

EVEN MORE about this episode!Margaret Meder found a spiritual connection with her son Evan, who passed away due to Apert syndrome, through sound frequencies. In this heartwarming story, Margaret shares how she continues to communicate with Evan in the afterlife and introduces her book, Uncommon Beauty: Crisis Parenting from Day One, offering insights and comfort to grieving parents.Margaret's journey into energy healing practices like Jin Shinjutsu opened new avenues for spiritual communication, including a transformative moment when she first heard Evan's voice through electronic voice phenomenon (EVP). Her story highlights the ongoing connections that transcend physical boundaries.Music plays a crucial role in her spiritual communications, amplified by her background as a choir director. Margaret discusses the emotional power of music, the significance of symbols and signs, and comforting messages from loved ones who have passed on. This episode is a heartfelt exploration of love, loss, and enduring connections, offering hope and healing to grieving families.Guest Biography:Margaret Meder is a music and choir teacher and Grief and Wellness Coach, dedicated to helping people cope with loss, particularly parents grieving the death of a child. Margaret understands grief deeply, having lost her 9-year-old son Evan in 2013. This loss led her on a spiritual journey to connect with deeper aspects of herself and the Universe, helping her find peace while keeping Evan close to her heart.Margaret's journey included discovering Jin Shin Jyutsu (a healing practice similar to acupuncture but without needles), Intuitive Studies, and Grief Education. She now shares her insights to help others navigate the challenging path of grief.She is the author of the award-winning book, Uncommon Beauty: Crisis Parenting from Day One, a guidebook for parents of medically fragile children.Episode Chapters:(0:00:01) - Communicating With Spirit(0:09:04) - Connecting With Spirit(0:23:21) - Spiritual Communication and Validation(0:34:51) - Spiritual Symbols and Connections(0:41:39) - Musical Connection to Emotions(0:56:59) - Spiritual Connections and Music's Power(1:06:20) - Helping Grieving Parents Find HealingPlease join Julie next week with your question.Thursdays at 8pm ET, 7pm CT, 5pm PT.https://askjulieryanshow.comAnd, please leave a five-star review and subscribe so you can hear all the new episodes.Sponsors & RecommendationsDisclaimer: This show is for informational purposes only. It is not intended to be medical, psychological, financial or legal advice. Please contact a licensed professional. The Ask Julie Ryan show, Julie Ryan, and all parties involved in producing, recording and distributing it assume no responsibility for listener's actions based on any information heard on this or any Ask Julie Ryan shows or podcasts.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Ever wondered how to balance intense summer training while keeping your motivation high? We promise you'll gain invaluable tips as we navigate the challenges of running in hot weather and share humorous yet stress-inducing tales of the infamous runDisney registration chaos. Chadwick Moore kicks off our episode with an engaging introduction, setting the stage for a series of updates, training tips, and inspiring stories. Alicia offers her personal comeback narrative from recent health setbacks, and we celebrate the spirit of camaraderie within the running community, emphasizing the importance of adjusting to the heat for those pivotal fall races.Our special guest Jonathan Siebert joins us to share his incredible journey of overcoming 27 surgeries due to Apert syndrome. Jonathan's positive outlook and perseverance shine through as he recounts his path from Disney's Castaway Cay 5K to preparing for the Dopey Challenge. As a motivational speaker, he has reached students worldwide, spreading messages of kindness and resilience inspired by his experiences. Jonathan's story is sure to leave you feeling empowered and ready to tackle any obstacle, both on and off the running track.Tom stopped bye and talked about his new Stoked Metabolic Summer Challenge an eight-week summer transformation challenge designed to motivate participants to kickstart their training and aim for significant body transformations.  Use Code Rise for a discount if you sign up by 6/24.We also recap remarkable race achievements and personal records from our listeners. Highlights include Grace's sub-60 goal, Kylie's record at the RC Cola Moon Pie 5K, and Nicole's journey to becoming an ultramarathoner. Amidst these achievements, we extend our support to community members facing personal challenges and celebrate the strong bonds within our running family. Whether you're gearing up for the Wine and Dine or Marathon Weekend, this episode is packed with inspiration, practical advice, and a heartfelt sense of community. Tune in, stay motivated, and keep running strong!Jonathan's Instagram Jonathan's FacebookStoked Metabolic Summer ChallengeRise and Run LinksRise and Run Podcast Facebook PageRise and Run Podcast InstagramRise and Run Podcast Website and ShopRise and Run PatreonPassport to RunRunningwithalysha Alysha's Run CSend us a Text Message.Support the Show.Rise and Run Podcast is supported by our audience. When you make a purchase through one of our affiliate links, we may earn a commission. As an Amazon Associate we earn from qualifying purchases.Sponsor LinksMagic Bound Travel Stoked Metabolic CoachingAffiliate LinksRise and Run Amazon Affiliate Web Page Kawaiian Pizza ApparelGoGuarded

El staff de PEV se reunió nuevamente para intentar hablar del ganador del apertura pero terminamos hablando del desempeño de los equipos peruanos en libertadores, el telehincha que le gusta defogar y porque SC es tan frio jaja!

In this episode, Ashley Watson shares her family's journey to wholeness. When Ashley's son, Jase, was unexpectedly born with a rare craniofacial condition called called Apert Syndrome, she was stunned and so were the doctors. From that moment on, they spent 6 weeks in the NICU, were life-flighted from Missoula to Seattle where Jase would undergo his first of almost 20 surgeries while there.  Since then, Jase and his older sister, Scarlett have both been diagnosed with autism and ADHD. Jase just celebrated his 6th birthday and although this family has had to endure some serious pain, they've also learned what it means to lean on each other and appreciate one another. Ashley, along with her husband Nate have seven children between the two of them and have learned to embrace all that comes with loving what she calls their "giant, chaotic, loving family."  Resources recommended by Ashley:MT DPHHS Children's Special Health ServicesMT DPHHS Early Intervention Family OutreachEmbracing Us Facebook page Mended Little HeartsAngel FlightFor statewide resources please visit the Linking Infants and Families to Supports athttps://hmhb-lifts.org/

Back for a second series titled ‘Pride not Prejudice' with guest contributors, Samera is also creating regional foods for Hayley, this episode it's vegetarian Betty's hotpot  [#CoronationStreet]. Samera and Hayley discuss the most common co–occurring conditions associated with autism and what layering of diagnoses means, from gastrointestinal and sleep issues to ADHD and dyslexia. Their first guest Emma describes her life as mum to Mac, who has a learning disability, autism and Apert's syndrome.   If you are new to autism and parenting, Quirky and Autistic Parenting podcast is just for you. The content of this podcast is for general information purposes only and does not constitute advice. Podcast Engineer: Liv Bennett, Theme music:  Alisdair Stirling  

In this podcast, we will hear Dorsey's inspiring story, he shares his journey of overcoming bullying and the limiting beliefs of others to become a successful and happy individual. Despite facing numerous challenges and setbacks, Dorsey refused to let them define him and instead chose to use his experiences as a catalyst for personal growth and transformation. Through his story, we will learn valuable lessons about resilience, self-acceptance, and the power of mindset in shaping our lives. Whether you have experienced bullying or struggle with acceptance, Dorsey's story will leave you feeling motivated and empowered to take control of your own life and achieve your dreams. Biography Dorsey was born on January 16th, 1977, with a congenital disability known as Apert's Syndrome. When Dorsey was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them. Doctor's gave Dorsey's parents no hope for his survival and advised them to put him into an institution.  His parents both knew and trusted in God, and they believed that God would do great things in Dorsey's life. Throughout his life, Dorsey has had to overcome a lot of obstacles, and trials, being bullied, called names like monster and freak, and undergone multiple operations. Teachers told Dorsey he would not make it in college, and with all odds against him, he entered Queens Borough Community College. After four years there, and after attaining an associate degree, he entered the University of Valley Forge. After years of hard work and perseverance, he graduated with a Bachelor's Degree in Youth Ministry.  His life saying is, “can't is not in my vocabulary” because, for most of his life, he has never used the word can't. He believes that with God, all things are possible and that he can do all things through Christ who gives him strength. It's with God's help he is overcoming life's obstacles. :www.dorseyrossministries.com About Theresa Inman A wife and a mother to two children, Theresa Alexander Inman is a Board Certified Behavior Analyst and Infant Toddler Development Specialist. She was introduced to the field of behavior analysis in 2007 after working in many capacities in the juvenile justice system. Her goal is to improve the lives of children and families by helping them strategize child develop skills to prevent or reduce the effects of possible delays while having fun! Theresa is also an author, having published ⁠“How Can I Help My Child Communicate?”⁠ in 2022. Connect with Theresa today! Instagram | ⁠Theresa Inman⁠ LinkedIn | ⁠Theresa Inman⁠ BabyBoomer.org | ⁠Theresa Inman⁠ YouTube | ⁠Parenting with Confidence⁠ Tiktok | ⁠Parenting Bytes⁠ Spotify via Anchor.fm | ⁠Parenting with Confidence ⁠ About Parenting with Confidence Parenting with Confidence with Theresa Alexander Inman presents you with answers if you are a tired and frustrated parent with a child diagnosed with a developmental delay. We aim to lift you up from the pressure of doing it right and provide you with the resources to set you and your child up for success! --- Send in a voice message: https://podcasters.spotify.com/pod/show/theresa-alexander-inman/message Support this podcast: https://podcasters.spotify.com/pod/show/theresa-alexander-inman/support

Nos anos 1980, a escritora e cantora Olivia Byington soube, na hora do parto, que seu primeiro filho, João, era portador de uma síndrome muito rara, a Síndrome de Apert. Em seu livro "O que é que ele tem" (Objetiva, 2016), ela contou como, aos 22 anos, imaginou o filho que teria, se preparou para um parto natural e como foi lidar com uma realidade diferente da que ela havia imaginado.No livro, ela escreveu sobre a solidão que sentiu quando, após cesárea e sedação, se deu conta de que seria uma mãe diferente da maioria. É sobre isso também o tema deste episódio.Olivia Byington dedicou grande parte de sua vida à música – ela é cantora e compositora. Nos últimos anos, a escrita é o que preenche seu dia a dia. Além de "O que é que ele tem", ela está trabalhando em um romance em que retrata as diferentes idades da vida — do 0 ao 100. O lançamento vai ser pela editora Jose Olympio. Uma série que trazia uma prévia desse livro foi publicada na Gama.Nesta edição, ela fala sobre solidão e maternidade, sobre a solidão das mães com filhos com algum tipo de deficiência e sobre os caminhos para que a sociedade integre essas pessoas. Roteiro e apresentação: Luara Calvi Anic Edição de som: Pedro Pastoriz No link abaixo e também no Deezer,Spotify,Apple Podcast,Google Podcastvocê escuta este episódio.

It can be hard to formulate long-term treatment plans when your patients are young. Syndromic craniosynostosis is diagnosable at birth, meaning that the treatment plans need to start from the get-go. In the previous episode, we spoke to Dr. Michael Markiewicz (MD DDS FACS) about craniosynostosis: how to diagnose it, what causes it, the different forms of the deformity, and why doctors shouldn't delay diagnosis. In this episode, we welcome back Dr. Mankiewicz and talk further about the syndromic aspect of craniosynostosis, looking specifically at syndromic versus non-syndromic. Dr. Markiewicz compares Apert syndrome and Crouzon syndrome, their characteristics and features, and the differing opinions on treatment plans. Dr. Markiewicz discusses the purpose of distraction osteogenesis when treating craniosynostosis, the amazing combination of virtual surgery planning and resorbable plates/screws, and why he is an advocate for cranial implants. Key Points From This Episode:The syndromes that can accompany craniosynostosis.How geneticists help diagnose syndromic craniosynostosis.Who makes up the Craniofacial team.The most common syndromes Dr. Markiewicz treats.The main characteristics and features of Apert syndrome and Crouzon syndrome.The differing opinions on treatment for Craniofacial dysostosis.The timeline for sequencing different stages of treatment.The role of the neurosurgeon, pediatric ophthalmologist, orthodontist, and OMFS.The role of virtual planning.The materials (typically titanium) used during craniosynostosis surgery.The purpose of distraction osteogenesis when treating craniosynostosis. New medical advancements Dr. Markiewicz is seeing.Why Dr. Markiewicz is an advocate for cranial implants.The consolidation phase versus the distraction period.The social management of big surgeries with a small child. Links Mentioned in Today's Episode:Dr. Michael Markiewicz — https://www.michaelmarkiewiczddsmd.com/Dr. Michael Markiewicz on LinkedIn — https://www.linkedin.com/in/michael-markiewicz-dds-md-mph-facs-04b02821/Dr. Michael Markiewicz on Twitter — https://twitter.com/mrmarkiewiczmdDr. Michael Markiewicz on Faceboook — https://www.facebook.com/drmichaelmarkiewiczmdddsDr. Michael Markiewicz on Instagram — https://www.instagram.com/drmichaelmarkiewiczmdddsDr. Michael Markiewicz Email — mrm25@buffalo.eduCraniosynostosis Surgery — https://www.chop.edu/treatments/surgical-treatment-craniosynostosisAO Foundation Surgery Reference — https://surgeryreference.aofoundation.org/Everyday Oral Surgery Website — https://www.everydayoralsurgery.com/ Everyday Oral Surgery on Instagram — https://www.instagram.com/everydayoralsurgery/ Everyday Oral Surgery on Facebook — https://www.facebook.com/EverydayOralSurgery/Dr. Grant Stucki Email — grantstucki@gmail.comDr. Grant Stucki Phone — 720-441-6059KLS Martin promo code EOSExo22 — https://www.klsmartin.com/ 

Vezetés közben lett rosszul, szívinfarktusban hunyt el a magyar művész hirado.hu     2023-01-04 04:09:00     Bulvár Szívroham Éppen három éve halt meg tragikus hirtelenséggel a népszerű színész, de az általa hagyott űr még mindig felfoghatatlan. Az megvan, hogy Kevin anyukája egy igazi gyökér? Player     2023-01-03 17:09:06     Film Vége az ünnepeknek, így most már nyugodtan beszélhetünk róla, hogy Kevin McCallister anyukája már akkor Karen volt, amikor ezt az embertípust még nem is így hívták. A legrosszabb magyar filmek közt az Aranybulla 24.hu     2023-01-03 17:23:27     Film A negatív toplista igazi nagyágyúit szorította hátrébb, de az abszolút mélyponttól sem választja el sok. Nincs baj, drágám: Ígéretes, csak behúzva maradt a kézifék Mafab     2023-01-04 04:00:02     Film Párkapcsolat Kedvelem a hasonló hangulatú, és világú alkotásokat. Vegyünk egy csipetnyi rejtélyt, némi összeesküvés érzéssel, kellően érdekes karaktereket, keverjük össze a tökéletes élet illúziójával. Máris kész a kisvárosi elegy, ahol látszólag minden perfekt. A lakói boldogok, párkapcsolati és egzisztenciális értelemben is. Ilyenkor üthet szeget a néző fejéb Tizenöt éves a Budapest Jazz Club Tudás.hu     2023-01-03 19:50:33     Színpad Az LFZE Big Band, a Hodek Áron Trio, valamint az Oláh Kálmán Jr. Quartet lép színpadra január 7-én a Budapest Jazz Clubban abból az alkalomból, hogy a BJC 15. születésnapját ünnepli. A Budapest Jazz Club 2007-es indulása után rövid időn belül ismert, itthon és nemzetközileg is jegyzett kulturális helyszínné, zenei központtá avanzsált – szerepel a s Mellbedobással győzött: hatvanéves lett Demi Moore Blikk     2023-01-03 20:23:40     Film Mexikó Demi Moore Az új-mexikói Roswell városa két dologról híres: egyfelől, hogy 1947-ben itt történt a nevezetes ufókatasztrófa, 1962-ben pedig itt született Demi Moore, bár akkoriban Demi Gene Guynes néven anyakönyvezték. A nem éppen átlagos életet élő színésznő átlépte a hatodik X-et. Utak és kapcsolódások – Beszélgetés Bozó Andrea színművésszel kultura.hu     2023-01-03 17:30:00     Színpad Jászai Mari-díj Molnár Csaba A szélesebb körű ismertséget Bozó Andrea számára az egészen az abszurdig tolt, elrajzoltságukban is ismerős, különös naivák, a Tóth János Valikája és Hab Krisztina Grétája hozták meg. A Jászai Mari-díjas színművész az ő furcsa kis világukban ugyanolyan otthonosan mozog, mint Csiky Gergelyében, Molnár Ferencében vagy épp Székely Csabáéban. Hidegpont – Latyitól Vidnyánszkyn át mindenkiről szó esik az Apertúra új előadásában Színház.online     2023-01-04 06:00:00     Színpad Maffia Budapest, Magyarország, a távoli múltban vagy jövőben. A várost egymással vetélkedő szakmai társaságok, maffiacsoportok, céhek és szakszervezetek uralják. Mindennaposak a kivégzések és a szentté avatások. Egy fiatalember próbál boldogulni ebben a káoszban, és igyekszik feljebb lépkedni azon a bizonyos ranglétrán. Nem mindennapi útja nem kevés áldoz 10 előzetes, ami alaposan átverte a nézőket port.hu     2023-01-03 18:05:00     Film Nemrégiben filmrajongók annyira felháborodtak azon, hogy a trailerbe még bekerült kedvencüket nem látták viszont a kész filmben, hogy pert indítottak egy stúdió ellen. Pedig az Ana de Armashoz és a Yesterdayhez kapcsolódó incidens egyáltalán nem egyedi eset. Mutatjuk is a többit. Guy Ritchie új filmje olyan, mint egy hamisított parfüm Telex     2023-01-03 23:02:58     Film USA Szinkron parfüm A Fortune-hadművelet extravagánsnak tűnik, de minden elemét máshonnan szedték, fantázia és elképzelés nélkül. Jason Statham ezerszer volt keménykedő bunyós, Aubrey Plazát tönkrevágja a magyar szinkron. Amerikában talán be se mutatják. Mi a különbség a Marvel fémjei, a vibránium és az adamantium között? Wide Screen     2023-01-03 18:12:52     Film Mozi Marvel A Marvel Moziverzum már találkozhattunk a vibrániummal, de hamarosan az adamantium is fontos szerepet kap.

Vezetés közben lett rosszul, szívinfarktusban hunyt el a magyar művész hirado.hu     2023-01-04 04:09:00     Bulvár Szívroham Éppen három éve halt meg tragikus hirtelenséggel a népszerű színész, de az általa hagyott űr még mindig felfoghatatlan. Az megvan, hogy Kevin anyukája egy igazi gyökér? Player     2023-01-03 17:09:06     Film Vége az ünnepeknek, így most már nyugodtan beszélhetünk róla, hogy Kevin McCallister anyukája már akkor Karen volt, amikor ezt az embertípust még nem is így hívták. A legrosszabb magyar filmek közt az Aranybulla 24.hu     2023-01-03 17:23:27     Film A negatív toplista igazi nagyágyúit szorította hátrébb, de az abszolút mélyponttól sem választja el sok. Nincs baj, drágám: Ígéretes, csak behúzva maradt a kézifék Mafab     2023-01-04 04:00:02     Film Párkapcsolat Kedvelem a hasonló hangulatú, és világú alkotásokat. Vegyünk egy csipetnyi rejtélyt, némi összeesküvés érzéssel, kellően érdekes karaktereket, keverjük össze a tökéletes élet illúziójával. Máris kész a kisvárosi elegy, ahol látszólag minden perfekt. A lakói boldogok, párkapcsolati és egzisztenciális értelemben is. Ilyenkor üthet szeget a néző fejéb Tizenöt éves a Budapest Jazz Club Tudás.hu     2023-01-03 19:50:33     Színpad Az LFZE Big Band, a Hodek Áron Trio, valamint az Oláh Kálmán Jr. Quartet lép színpadra január 7-én a Budapest Jazz Clubban abból az alkalomból, hogy a BJC 15. születésnapját ünnepli. A Budapest Jazz Club 2007-es indulása után rövid időn belül ismert, itthon és nemzetközileg is jegyzett kulturális helyszínné, zenei központtá avanzsált – szerepel a s Mellbedobással győzött: hatvanéves lett Demi Moore Blikk     2023-01-03 20:23:40     Film Mexikó Demi Moore Az új-mexikói Roswell városa két dologról híres: egyfelől, hogy 1947-ben itt történt a nevezetes ufókatasztrófa, 1962-ben pedig itt született Demi Moore, bár akkoriban Demi Gene Guynes néven anyakönyvezték. A nem éppen átlagos életet élő színésznő átlépte a hatodik X-et. Utak és kapcsolódások – Beszélgetés Bozó Andrea színművésszel kultura.hu     2023-01-03 17:30:00     Színpad Jászai Mari-díj Molnár Csaba A szélesebb körű ismertséget Bozó Andrea számára az egészen az abszurdig tolt, elrajzoltságukban is ismerős, különös naivák, a Tóth János Valikája és Hab Krisztina Grétája hozták meg. A Jászai Mari-díjas színművész az ő furcsa kis világukban ugyanolyan otthonosan mozog, mint Csiky Gergelyében, Molnár Ferencében vagy épp Székely Csabáéban. Hidegpont – Latyitól Vidnyánszkyn át mindenkiről szó esik az Apertúra új előadásában Színház.online     2023-01-04 06:00:00     Színpad Maffia Budapest, Magyarország, a távoli múltban vagy jövőben. A várost egymással vetélkedő szakmai társaságok, maffiacsoportok, céhek és szakszervezetek uralják. Mindennaposak a kivégzések és a szentté avatások. Egy fiatalember próbál boldogulni ebben a káoszban, és igyekszik feljebb lépkedni azon a bizonyos ranglétrán. Nem mindennapi útja nem kevés áldoz 10 előzetes, ami alaposan átverte a nézőket port.hu     2023-01-03 18:05:00     Film Nemrégiben filmrajongók annyira felháborodtak azon, hogy a trailerbe még bekerült kedvencüket nem látták viszont a kész filmben, hogy pert indítottak egy stúdió ellen. Pedig az Ana de Armashoz és a Yesterdayhez kapcsolódó incidens egyáltalán nem egyedi eset. Mutatjuk is a többit. Guy Ritchie új filmje olyan, mint egy hamisított parfüm Telex     2023-01-03 23:02:58     Film USA Szinkron parfüm A Fortune-hadművelet extravagánsnak tűnik, de minden elemét máshonnan szedték, fantázia és elképzelés nélkül. Jason Statham ezerszer volt keménykedő bunyós, Aubrey Plazát tönkrevágja a magyar szinkron. Amerikában talán be se mutatják. Mi a különbség a Marvel fémjei, a vibránium és az adamantium között? Wide Screen     2023-01-03 18:12:52     Film Mozi Marvel A Marvel Moziverzum már találkozhattunk a vibrániummal, de hamarosan az adamantium is fontos szerepet kap.

Dorsey Ross tells his story of being born with Apert's Syndrome, struggling with bullying, trying to fit in, and ultimately following God's plan for his life.   www.dorseyrossministries.com Overcomer by Dorsey Ross

Today, I am delighted to welcome my incredible guest and friend Dorsey Ross to the podcast.   Dorsey was born on January 16th, 1977, with a congenital disability known as Apert's Syndrome. When Dorsey was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them. Doctor's gave Dorsey's parents no hope for his survival and advised them to put him into an institution.  His parents both knew and trusted in God, and they believed that God would do great things in Dorsey's life. Throughout his life, Dorsey has had to overcome a lot of obstacles, and trials, being bullied, called names like monster and freak, and undergone multiple operations.Teachers told Dorsey he would not make it in college, and with all odds against him, he entered Queens Borough Community College. After four years there, and after attaining an associate degree, he entered the University of Valley Forge. After years of hard work and perseverance, he graduated with a Bachelor's Degree in Youth Ministry.  His life saying is, “can't is not in my vocabulary” because, for most of his life, he has never used the word can't. He believes that with God, all things are possible and that he can do all things through Christ who gives him strength. It's with God's help he is overcoming life's obstacles.In this podcast conversation, we talk about his journey to overcome and triumph. Dorsey inspires to never give up, but to keep going.   It has been my pleasure to have Dorsey join me, and I know, my listeners, that you will enjoy the episode. Please, head to Amazon or Takealot at the link and get your copy of my E-book or paperback book edition, Ray of Light, and please leave me a rating and review. It would mean the world to me.Amazon.com Link: https://lnkd.in/df_4QV6STakealot.com  Link: https://lnkd.in/dGUQKPKNEnjoy the episode, and a special thank you to my listeners for joining me on this journey. Stay tuned and keep listening.Should you wish to connect with Dorsey, you can check out his website and social media links below. Website: https://dorseyrossministries.com/Instagram: http://www.instagram.com/dorsey.rossFacebook: https://www.facebook.com/dorseyrossministries LinkedIn: https://www.linkedin.com/in/dorseyross/ Twitter: https://www.twitter.com/dorseyrossConnect with me by checking out mycenteredlife for daily inspiration, and leave me a comment to let me know what you think of the episode.Facebook: http://www.facebook.com/mycenteredlifeInstagram: http://www.instagram.com/mycenteredlife LinkedIn: http://www.linkedin.com/in/marlene-mcconnell-6abb331aSupport the show

A.Canovi:" Rabiot è libero di fare le sue scelte. Il Napoli squadra completa." Discreti:" Rabiot nella Juve di oggi dopo Pogba è il più forte centrocampista." Ceccarini:" A centrocampo nella Juve troppi errori da anni. Il Napoli ha aperto una nuova storia."

In episode 133, Dorsey Ross shares how he will not let his circumstances lead him to limit God. Born with Apert's Syndrome, Dorsey has known what it has meant to be both limited and have others assume limitations for you. He also knows Philippians 4:13, "I can do all things through Christ who strengthens me." Dorsey's story reminds us both of our tendency to limit God in the midst of suffering, and the reality of His limitlessness, and leaves us with an invitation to step in faith. How have you limited God? You can connect with Dorsey and his content here: https://www.dorseyrossministries.com/ https://www.facebook.com/DROCKROSS https://www.youtube.com/channel/UCDnmHaMSbfIgheyZmM1vtYg https://www.instagram.com/dorsey.ross/ ~ Check out our website: www.WhereDidYouSeeGod.com ~ Want a free resource? Check out "A Journey through Revelation (for the person that doesn't want to read Revelation)": https://www.wheredidyouseegod.com/revelation You can also purchase a Kindle or paperback version on Amazon at tinyurl.com/WDYSGRevelation ~ We now have apparel for you to wear as an amazing conversation-starter! https://www.bonfire.com/store/where-did-you-see-god/ ~ Have a story? You can leave a brief message at (804) 372-3836, or www.facebook.com/wheredidyouseeGod/ ~ The music in this episode is "You'll walk, you'll run" by Urban Doxology, from their amazing album "Bread for the Journey." ~ If you appreciate what God is doing through this podcast, you can help keep it going through financial support. Gifts can be processed at https://worldoutreach.org/707 ~ Learn more about how God's calling us: Pray: tinyurl.com/GrangerPray Follow: tinyurl.com/GrangerList Give: worldoutreach.org/707 ~ #suffering #dialogue #Godstillspeaks #WDYSG #conversation #apertssyndrome #aperts #cant #disability #philippians413 #icandoallthings #podmatch #podpros #madewithZencastr --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/wheredidyouseegod/message Support this podcast: https://anchor.fm/wheredidyouseegod/support

Apert o PLAY e ouça o áudio do dia com o "LÍDER DON WALK". 298 I TPBR - O Aprendizado E Para Sempre I Don Walk I Amway --- Send in a voice message: https://anchor.fm/carlossousa/message Support this podcast: https://anchor.fm/carlossousa/support

Dorsey was born on January 16th, 1977, with a congenital disability known as Apert's Syndrome. When Dorsey was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them. Doctors gave Dorsey's parents no hope for his survival and advised them to put him into an institution. His parents both knew and trusted in God, and they believed that God would do great things in Dorsey's life. Throughout his life, Dorsey has had to overcome a lot of obstacles, and trials, being bullied, called names like monster and freak, and undergone multiple operations. Teachers told Dorsey he would not make it in college, and with all odds against him, he entered Queens Borough Community College. After four years there, and after attaining an associate degree, he entered the University of Valley Forge. After years of hard work and perseverance, he graduated with a Bachelor's Degree in Youth Ministry. His life saying is, "can't is not in my vocabulary" because, for most of his life, he has never used the word can't. He believes that with God, all things are possible and that he can do all things through Christ who gives him strength. It's with God's help he is overcoming life's obstacles.   Quote: "Can't is not in my vocabulary." - Dorsey Ross   Connect with Dorsey: Website: www.dorseyrossministries.com   Show hashtag: #TrinaTalk LinkedIn: https://www.linkedin.com/in/trina-l-martin Facebook: https://www.facebook.com/TrinaTalk Instagram: @trina.l.martin  Twitter: @TrinaLMartin

Our guest this week is Don “DJ” Joss, owner of DJ's Sportscards in Renton, Washington. Don and his wife, Amy, are parents to 21 children, including 14 adopted children (from China, Guatemala, Ethiopia, Taiwan, and Bulgaria) as well as 10 with special needs. We'll hear Don's incredible story about opening their home and hearts as well as their faith journey and more on this Special Fathers Network Dad to Dad Podcast. DJ's Sportscards - https://djssportscards.comEmail - dj@djssportscards.comPhone - 425-235-4357Apert Syndrome - https://www.healthline.com/health/apert-syndrome Schizencephaly - https://rarediseases.info.nih.gov/diseases/166/schizencephaly Washington State Fathers Network – https://fathersnetwork.org Seattle Children's Hospital - https://www.seattlechildrens.org/ Mary Bridge Children's Hospital – https://www.marybridge.org Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations. Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA Please support the SFN. Click here to donate: https://21stcenturydads.org/donate/

Pedro Frazão, vice do Chega, foi convidado de uma Vichyssoise onde se discutiram as novas medidas contra a Covid e o duelo entre Rio, o indesejado e Rangel, o impreparado See omnystudio.com/listener for privacy information.

Dorsey Ross is a public speaker and podcaster. He was born with Apert's Syndrome. Today, Dorsey shares his parent's choice to nurture and support him, going to college when many didn't think he could, and becoming a speaker and podcaster. Dorsey's story is full of challenges that he's overcome with God's help. His spirit will encourage you to face your challenges, too. Listen to Dorsey's story now! Stories Dorsey shared: Growing up in Queens, New York Being born with Apert's Syndrome His parent's decision to nurture him Being picked on and in hospitals as a child Giving his life to Christ at the age of 13 in a worship service Asking God why he was born this way Wanting to become a youth pastor Going to college in spite of a teacher who didn't think he could The Bible study group that helped his anxiety Going to Bible college and how that shaped him Seeking a ministry position but the doors kept closing Getting an opportunity to share his story Beginning to speak around the country Why he loves the story of Paul's thorn in the flesh Starting a podcast on a whim Great quotes from Dorsey: Can't is not in my vocabulary. He is our hope. He is our peace. Whatever you're dealing with, you're not alone. Resources we mentioned: Dorsey's website Related episodes: Tiffany Jo Baker and Giving Life to Dreams Cliff Haddox and the Story That Grows With You Dr. Michelle Bengston and Overcoming Anxiety  The post Dorsey Ross and the Story We All Tell appeared first on Eric Nevins.

Dorsey Ross is a public speaker and podcaster. He was born with Apert’s Syndrome. Today, Dorsey shares his parent’s choice to nurture and support him, going to college when many didn’t think he could, and becoming a speaker and podcaster. Dorsey’s story is full of challenges that he’s overcome with God’s help. His spirit will […] The post Dorsey Ross and the Story We All Tell appeared first on Eric Nevins.

Dorsey Ross shares with Mighty Pete and the Fire in the Belly audience about what it's like to live with a visible birth defect and facial deformity. His parents' miracle baby, born in 1977 -- 21 years after their first child and 16 years after their second – he was quickly diagnosed with Apert's Syndrome. Rather than institutionalize him as was recommended, his parents brought him home and raised him like they would anyone else. He found community early on in church youth groups: in the church he was never bullied like he was elsewhere; people accepted him for who he was and supported the vision for his life. This experience instilled a deep bedrock of faith in him and started him on the path of becoming a travelling minister. He is a proud public speaker and aims to inspire everyone he meets to doggedly pursue the life of their dreams. KEY TAKEAWAYS You can do anything you want in life if you allow yourself to figure out your own way of approaching your goals. Determination and faith are the foundation of a successful life. If you uncover your true self, the people who are meant to love and support you will find you. Being of service to others takes the guesswork out of having a good, fulfilled life. BEST MOMENTS “My parents always encouraged me to try and figure out what are the things Dorsey can do and what are the things that Dorsey can't do. From that I learned…that there weren't many things I wouldn't be able to do, even if I had to adapt.” “(God) created me for a reason and a purpose.” “My gift is to encourage people…to inspire people to do what it is that God wants them to do… to push on in their life circumstances, in their life trials, the barriers that people put in front of them that they can overcome.” (Regarding what he'd like his legacy to be) “(Dorsey was) one of those people (who) never gave up, (who) who kept going on, (who) kept persevering in his life.” ABOUT THE GUEST Dorsey Ross was never meant to survive. Born in 1977 with a rare birth defect called Apert's Syndrome, doctors initially told his parents that he was brain dead and that they should institutionalize him. His parents, though, wanted to see what he could do, and with their encouragement, Dorsey realized that he could do anything he wanted. After finding Christianity in his childhood, graduating high school, and taking college courses, he realized his true destiny was in ministry. He began calling different churches, asking if he could speak at their services. Decades later, Dorsey is still a “travelling minister” and a motivational speaker, as well as podcaster and tech aficionado. A person of devout faith who puts that faith into action, Dorsey is currently based in Pennsylvania.   CONTACT METHOD Instagram: https://www.instagram.com/dorsey.ross/ Website: https://dorseyrossministries.com/ Twitter: https://twitter.com/DorseyRoss Podcast: https://podcasts.apple.com/us/podcast/dorsey-ross-show/id1495921329?uo=4       ABOUT THE HOST The ‘Mighty Pete Lonton' from the ‘Mighty 247' company is your main host of ‘Fire in The Belly'. Pete is an entrepreneur, mentor, coach, property Investor, and father of three beau98tiful girls. Pete's background is in project management and property, but his true passion is the ‘Fire in The Belly' project itself. His mission is to help others find their potential and become the mightiest version of themselves. Pete openly talks about losing both of his parents, suffering periods of depression, business downturn and burn-out, and ultimately his years spent not stoking ‘Fire in the Belly'. In 2017, at 37 years of age that changed, and he is now on a journey of learning, growing, accepting, and inspiring others. Pete can connect with people and intuitively asks questions to reveal a person's passion and discover how to live their mightiest life. The true power of ‘Fire in The Belly' is the Q&A's - Questions and Actions section. The ‘Fire in The Belly' brand and the programme is rapidly expanding into podcasts, seminars, talks, business workshops, development courses, and rapid results mentoring. CONTACT METHOD https://www.facebook.com/mightypetelonton/ https://uk.linkedin.com/in/mightypete https://www.facebook.com/groups/430218374211579/                   Support the show: https://www.facebook.com/groups/430218374211579/ See omnystudio.com/listener for privacy information.

If you're looking for a way to overcome the obstacles in your life, this is not just another self-help podcast. This is an invitation. Mark & Annette had an inspiring conversation with Dorsey Ross. Dorsey was born on January 16th, 1977, with a congenital disability known as Apert's Syndrome. When Dorsey was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them. Doctors gave Dorsey's parents no hope for his survival and advised them to put him into an institution.  His parents both knew and trusted in God, and they believed that God would do great things in Dorsey's life. Throughout his life, Dorsey has had to overcome a lot of obstacles, and trials, being bullied, called names like monster and freak, and undergone multiple operations.Teachers told Dorsey he would not make it in college, and with all odds against him, he entered Queens Borough Community College. After four years there, and after attaining an associate degree, he entered the University of Valley Forge. After years of hard work and perseverance, he graduated with a Bachelor's Degree in Youth Ministry.  His life saying is, “can't is not in my vocabulary” because, for most of his life, he has never used the word can't. He believes that with God, all things are possible and that he can do all things through Christ who gives him strength. It's with God's help he is overcoming life's obstacles.Reach out to Dorsey and order your signed copy of Overcomer, understanding God's plan against all odds. What defines you? What do you stand for? If your answer is "I don't know", then it's time to find out! And I believe that once we understand what God has called us to be and do, our lives will never be the same again. So let me ask: Who are YOU going to be today?

If you're looking for a way to overcome the obstacles in your life, this is not just another self-help podcast. This is an invitation. Mark & Annette had an inspiring conversation with Dorsey Ross. Dorsey was born on January 16th, 1977, with a congenital disability known as Apert's Syndrome. When Dorsey was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them. Doctors gave Dorsey's parents no hope for his survival and advised them to put him into an institution.  His parents both knew and trusted in God, and they believed that God would do great things in Dorsey's life. Throughout his life, Dorsey has had to overcome a lot of obstacles, and trials, being bullied, called names like monster and freak, and undergone multiple operations.Teachers told Dorsey he would not make it in college, and with all odds against him, he entered Queens Borough Community College. After four years there, and after attaining an associate degree, he entered the University of Valley Forge. After years of hard work and perseverance, he graduated with a Bachelor's Degree in Youth Ministry.  His life saying is, “can't is not in my vocabulary” because, for most of his life, he has never used the word can't. He believes that with God, all things are possible and that he can do all things through Christ who gives him strength. It's with God's help he is overcoming life's obstacles.Reach out to Dorsey and order your signed copy of Overcomer, understanding God's plan against all odds. What defines you? What do you stand for? If your answer is "I don't know", then it's time to find out! And I believe that once we understand what God has called us to be and do, our lives will never be the same again. So let me ask: Who are YOU going to be today?

Dorsey was born on January 16th, 1977 with a congenital disability known as Apert's Syndrome. When Dorsey was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them.Doctors gave Dorsey's parents no hope for his survival and advised them to put him into an institution. His parents both knew and trusted in God, and they believed that God would do great things in Dorsey's life.Throughout his life, Dorsey has had to overcome a lot of obstacles, and trials, being bullied, called names like monster and freak, and undergone multiple operations. Teachers told Dorsey he would not make it in college, and with all odds against him, he entered Queens Borough Community College.After four years there, and after attaining an associate degree, he entered the University of Valley Forge. After years of hard work and perseverance, he graduated with a bachelor's degree in Youth Ministry. His life saying is, “can't is not in my vocabulary” because, for most of his life, he has never used the word can't. He believes that with God, all things are possible and that he can do all things through Christ who gives him strength. It's with God's help he is overcoming life's obstacles.Ending Paragraphs:You can also find more Richard Listens content on Instagram (@RichardListens), Facebook (@Richard Listens), and RichardListens.com. Support the show (http://patreon.com/Richardlistens)Support this podcast at — https://redcircle.com/richardlistens/donations

Welcome to episode #32My guest is Dorsey Ross.Dorsey is a youth minister, speaker, author and podcaster. In today's episode, Dorsey shares his story of love, persistence and overcoming challenges.  He was born in the late 70s with a congenital disability known as Apert's Syndrome.  When he was born, the doctors gave Dorsey's parents no hope for survival and advised them to put him into an institution.  However, his parents believed that God would do great things in Dorsey's life.  He grew up with his parents and the help of their church's community support.  Growing up was very difficult.  He had to overcome years of harmful comments directed at him and 68 operations.  His high school teachers told Dorsey that he would not make it to college.  But despite all the odds being against him after years of hard work and perseverance, he graduated with a Bachelor's Degree in Youth Ministry. He currently lives in Philadelphia with his 90-year-old father. Dorsey's thick skin has made him strong, tenacious and given him his persevering character.Enjoy!To learn more from Dorsey:Website: https://dorseyrossministries.com/Podcats: Dorsey Ross ShowIG: @dorsey.ross

In this episode, I get to interview my friend Dorsey who is a sweet guy, but he's been through a lot in his life, and I hope you listen to him even though it's sometimes hard to understand what he saying, because of his speech in pediment, he is a really smart guy and worth listening to. He was born with a congenital disability known as Apert's Syndrome. He described in the episode how his condition deformed his facial structure, fused his fingers and toes, and more. Are we discuss bullying, and how he pushes himself to do events like basketball and rock climbing even though they are more of a challenge for him. He is on a mission to find his true love which is very heartbreaking, but also inspiring at the same time. We should wish him nothing but the best, I know he will find her Dorsey's podcast https://podcasts.apple.com/us/podcast/dorsey-ross-podcast/id1495921329?i=1000530285405    

In this episode, I get to interview my friend Dorsey who is a sweet guy, but he's been through a lot in his life, and I hope you listen to him even though it's sometimes hard to understand what he saying, because of his speech in pediment, he is a really smart guy and worth listening to. He was born with a congenital disability known as Apert's Syndrome. He described in the episode how his condition deformed his facial structure, fused his fingers and toes, and more. Are we discuss bullying, and how he pushes himself to do events like basketball and rock climbing even though they are more of a challenge for him. He is on a mission to find his true love which is very heartbreaking, but also inspiring at the same time. We should wish him nothing but the best, I know he will find her Dorsey's podcast https://podcasts.apple.com/us/podcast/dorsey-ross-podcast/id1495921329?i=1000530285405    

Dorsey was born with a congenital disability known as Apert's Syndrome. When he was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them. Doctors gave Dorsey's parents no hope for his survival and advised them to put him into an institution. Website: https://dorseyrossministries.com/ Facebook: https://www.facebook.com/DROCKROSS Instagram: https://www.instagram.com/dorsey.ross/ Twitter: https://twitter.com/DorseyRoss Youtube: https://www.youtube.com/channel/UCDnmHaMSbfIgheyZmM1vtYg To learn more about James, visit Professor of Perseverance. You may also contact him through email, James@professorofperseverance.com or call 615 – 336 – 2181

Dorsey's story is that - Truly Inspirational.  Dorsey speaks to his disability, and more so about his "abilities", which range in many factors from all the surgeries he had to endure, the wonderful support of his parents, their faith as a family, and his continued pursuit to follow his dreams and passions.We are honored to have Dorsey Ross as a guest on our Podcast.You can reach Dorsey at https://www.dorseyrossministries.com/More about Dorsey:Dorsey was born on January 16th, 1977, with a congenital disability known as Apert's Syndrome. When Dorsey was born, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no individual movement of them. Doctor's gave Dorsey's parents no hope for his survival and advised them to put him into an institution.  His parents both knew and trusted in God, and they believed that God would do great things in Dorsey's life. Throughout his life, Dorsey has had to overcome a lot of obstacles, and trials, being bullied, called names like monster and freak, and undergone multiple operations.Teachers told Dorsey he would not make it in college, and with all odds against him, he entered Queens Borough Community College. After four years there, and after attaining an associate degree, he entered the University of Valley Forge. After years of hard work and perseverance, he graduated with a Bachelor's Degree in Youth Ministry.  His life saying is, “can't is not in my vocabulary” because, for most of his life, he has never used the word can't. He believes that with God, all things are possible and that he can do all things through Christ who gives him strength. It's with God's help he is overcoming life's obstacles.#entrepreneurmind #succeeding #entrepreneurspirit #successminded #inspiration #change #education #lifelessons #buzzsprout #podcast #podcasting #Spotify #GooglePodcast #TuneIn #stitcher #ApplePodcast #iHeartRadio #Pandora #PodcastAddict #Podchaser #Deezer #Listennotes #Overcast #Pocketcast #Castro #CastPost #iamthatgal #liftyourstory #liftyourstorypodcast #thatgalwiththatguy Free Book with any $20+ Podcast Support Make Up Not Required - How to Brand the TRUE You by LaurieAnn & Contribution by Roy MillerSupport the show (https://paypal.me/iamthatgal)

"Can't is not in my vocabulary" - Dorsey RossDorsey Ross was born with Apert syndrome, which is a condition where the bones of the skull fuse together too early while the fetus is developing.   This affects the shape of the head and face.  Also fingers and toes may be fused together.  When he was born, the doctors gave his parents no hope for his survival, but he did.  Teachers told him that he could never make it in college, but he did.  He believes that with God, all things are possible, and now he's an author, a podcast host, and a man with a message. You can reach Dorsey or purchase his book on his website https://dorseyrossministries.com

Dagens gäst är Simone. Vi snackar om uppväxten, jobb och hennes första barn Minea. Hon föddes med det ovanliga missbildningssyndromet Apert syndrom. Vi kommer att prata om livet och att inte bara bli förälder för första gången, utan att bli förälder till ett barn med särskilda behov och som dom inte visste skulle överleva" utöver detta kommer även Simone släppa en bomb som absolut ingen hört innan! Så detta får ni inte missa att höra! Men stort grattis!

 Michelle Wyatt from GOSH and Dan Tweedie from the Evalina discuss syndromes that are of relevance to the paediatric ENT surgeon. For this episode the emphasis is on airway problems rather than hearing problems.includes discussion of Downs syndrome, Treacher Collins syndrome, Goldenhar syndrome, Carouzon and Apert syndromes and achondroplasia.

Last but not least, tonight's guest on “The Untold Stories” series is Rabia Aziz- Rizvi, founder of the Facebook group Special Needs Pakistan, Founder of Aaliya's Care Packages, Motivational Speaker, and Facilitator. In this Episode Rabia tells us how she found out about her daughter's condition, her journey of multiple surgeries and upon finding no support for herself or her child, how she created “Special Needs Pakistan” Pakistan's first support group for Special Needs.

Neste episódio entrevistamos três bateristas muito especiais: Daniel Brunelli (Tatu), diagnosticado com esclerose múltipla, Gui Caiaffa, portador da Síndrome de Apert, e João Caveira, diagnosticado com hemofilia. Vamos conhecer suas histórias e conversar sobre como suas supostas limitações se tornaram suas motivações! Pegue seu pad de estudo e suas baquetas e vem conferir esse super papo! Quer participar ao vivo com a gente? Siga o República do Som nas redes sociais para ser avisado quando formos gravar as quartas feiras e colar com a gente!

In this episode, we review the high-yield topic of Apert Syndrome from the Hand section. --- Send in a voice message: https://anchor.fm/orthobullets/message

This has to be one of the most emotional and insightful episodes we have recorded. Understanding your purpose or finding what makes you happy is the greatest challenge we face as human beings. In today's episode, Rafael "Tripp" Trinidad shares his journey of finding his passion despite dealing with Apert syndrome and the many other challenges that come with it. This is truly the episode you DO NOT WANT TO MISS!

durée : 00:29:43 - On Cuisine Ensemble FB Saint Etienne

Dans l'épisode 2 de "Vilain Levain", nous avons évoqué la supériorité du pain au levain et de la qualité des matières premières. J'ai demandé à Cécile Apert de nous parler de son métier d'agricultrice et meunière, et de nous expliquer le procédé d'extraction de sa farine, grâce à sa meule de pierre de type Astrié. Voici dans cet épisode, son interview complète, dans laquelle elle nous évoque son parcours et ses choix de vie. Retrouvez son travail ainsi que celui de son mari sur sa page facebook "Cereales & Paradis" 

Épisode 2 - Où il est question de goût, de qualité et de fraîcheur Arôme, qui vient du grec "arôma" et qui signifie "parfum". ⠀ Je pourrais parler pendant des heures du parfum du pain. Encore plus, de celui du pain au levain. ⠀ D'ailleurs, je vous en cause un bout dans ce nouvel épisode de "Vilain Levain". ⠀ La gamme aromatique du pain au levain s'étend sur des centaines de notes différentes... ! Un pain au levain peut parfois sentir la paille fraîche, ou la noisette moulue, ou le caramel. ⠀ Pourquoi tout ce panel d'odeurs différentes ? Comment cela se fait-il ?

Strategies for Achieving a Five-Digit Hand in Apert's Raposo-Amaral CE, Denadai R, Furlan P, Raposo-Amaral CA. Treatment of Apert Hand Syndrome: Strategies for Achieving a Five-Digit Hand. Plast Reconstr Surg. 2018 Oct;142(4):972-982

Este domingo –en el marco de las fiestas de San Isidro– la localidad navarra de Allo acoge su 4ª Carrera Solidaria; carrera a beneficio de cinco asociaciones: Asociación Síndrome Apert, Asociación Luciérnaga, Asociación ANAPKU, ANFAS Estella y GERNA. Solo el año pasado lograron reunir a más de 750 participantes y sumar una recaudación de cerca de 15.000. Un evento que sigue creciendo, como nos ha contado Ana Aramendia, organizadora de la carrera. Con Estíbaliz Martínez, responsable de ANFAS Estella, hemos conocido, además, el destino de parte de la recaudación. Sin abandonar ese doble perfil deportivo y solidario, también hemos salido al encuentro de la buena gente de la Asociación Montes Solidarios, iniciativa que ha demostrado que es posible romper las barreras o límites de la discapacidad siempre que haya personas dispuestas a intentarlo. Nacieron con el firme propósito de cumplir sueños, como hemos recordado con su presidente Yosu Vázquez. Esta misma semana han arrancado un proyecto junto a la Diputación Foral de Álava, que acercará a personas con movilidad reducida y a personas ciegas o con baja visión a ocho recursos turísticos del territorio.

Este domingo –en el marco de las fiestas de San Isidro– la localidad navarra de Allo acoge su 4ª Carrera Solidaria; carrera a beneficio de cinco asociaciones: Asociación Síndrome Apert, Asociación Luciérnaga, Asociación ANAPKU, ANFAS Estella y GERNA. Solo el año pasado lograron reunir a más de 750 participantes y sumar una recaudación de cerca de 15.000. Un evento que sigue creciendo, como nos ha contado Ana Aramendia, organizadora de la carrera. Con Estíbaliz Martínez, responsable de ANFAS Estella, hemos conocido, además, el destino de parte de la recaudación. Sin abandonar ese doble perfil deportivo y solidario, también hemos salido al encuentro de la buena gente de la Asociación Montes Solidarios, iniciativa que ha demostrado que es posible romper las barreras o límites de la discapacidad siempre que haya personas dispuestas a intentarlo. Nacieron con el firme propósito de cumplir sueños, como hemos recordado con su presidente Yosu Vázquez. Esta misma semana han arrancado un proyecto junto a la Diputación Foral de Álava, que acercará a personas con movilidad reducida y a personas ciegas o con baja visión a ocho recursos turísticos del territorio.

When little Aiden Skees was born nine years ago, doctors didn't quite know what was wrong. Today his craniofacial syndrome, and others like it, have gained national attention through the book and blockbuster movie, “Wonder” written by R.J. Palacio. Aiden's mom, Taryn Skees, joins us on The Kindness Podcast to talk about how she's prepared her son to head out into a world that points and stares. To learn more about Aiden's documentary, Apert syndrome and how to support a child with special needs, head to MoreSkeesPlease.com or http://www.apertowl.org.

Dorsey Ross was born on January 16th, 1977, with a birth defect known as Apert’s Syndrome, which is characterized by malformations of the skull, face, hands and feet. Plainly speaking, his forehead was pushed outward, his nose and mouth were pushed inward, and his fingers and toes were fused, meaning he had no personal movement of them. Doctor’s gave Dorsey’s parents no hope for his survival and advised them to put him into an institution. Thankfully they both knew and trusted in God, and believed God had a plan and a purpose for Dorsey’s life.

Josh and Megan learned to embrace their lives with their son who has Apert syndrome. He requires a lot of surgeries but they see him as a complete joy.

Each month the plastic surgery journal club reviews a recent paper Here is the paper Spruijt B, Rijken BF, den Ottelander BK, Joosten KF, Lequin MH, Loudon SE, van Veelen ML, Mathijssen IM. First Vault Expansion in Apert and Crouzon-Pfeiffer Syndromes: Front or Back? Plast Reconstr Surg. 2016 Jan;137(1):112e-21e. http://www.ncbi.nlm.nih.gov/pubmed/26368328

Jeannie Ewing is a writer, speaker and grief recovery coach. She's also the mother of two girls with special needs. Felicity is four and Sarah is two. Felicity has SPD, ADD and anxiety. Sarah has Apert syndrome. Jeannie talks about her journey as a mother and how she came to help others who are in a dark place. Love Alone Creates Jeannie's Article on The Mighty The Out of Sync Child The Out of Sync Child Has Fun

Tue, 27 Jul 2004 12:00:00 +0100 https://edoc.ub.uni-muenchen.de/2489/ https://edoc.ub.uni-muenchen.de/2489/1/Meyer-Marcotty_Philipp.pdf Meyer-Marcotty, Philipp