Podcast appearances and mentions of charles bonnet syndrome

‘Periphery: How We See (and Don't See) the World' is a truly accessible immersive exhibition of work by Multi-Disciplinary Artist and Designer Sarah Jane Palmer which came from conversations Sarah had with her Farther about the visual hallucinations he had been experiencing through the condition Charles Bonnet Syndrome which is currently on at The Point, Doncaster until 16 May 2025.  RNIB Connect Radio's Toby Davey recently caught up with Sarah to find out a bit more about her background as an artist, how the conversations with her father about the visual hallucinations were turned into the installations and work that is on display in 'Periphery' at the Point in Doncaster.  Sarah also explained to Toby that having now worked to make ‘Periphery' accessible to blind and partially sighted people, Sarah will be working hard to encourage other artists and galleries to make their exhibitions truly accessible to everyone too. ‘Periphery: How We See (and Don't See) the World' is on at the Point, Doncaster until 16 May 2025 and for more about the work on display do visit - https://periphery.myportfolio.com For more about the Point including opening times to visit ‘Periphery' in person do visit - https://thepoint.org.uk And for more about Sarah Jane Palmer and her work do visit - https://sarahjanepalmer.co.uk (Image shows Sarah in front of part of the work, a wall mounted piece of concentric circles with various raised tactile patterns, her eyes closed and her index finger tracing part of it)

In this podcast we talk to Dr Jasleen Jolly, Associate Professor at Jolly Vision Science and Honorary fellow at Melbourne University. We are also joined by Yvette Chivers, Helpline Coordinator at Retina UK, who is living with Retinitis Pigmentosa (RP) and experiences CBS.Charles Bonnet Syndrome is phenomenon where some people with sight loss experience visual hallucinations. Tune in to find out more about CBS, Yvette's experience and the work that Dr Jasleen Jolly is doing.Researchers at Cardiff University are currently looking for participants to take part in a 60 minute online survey about experiences of Charles Bonnet syndrome, which is open to anyone with sight loss, regardless of whether they experience hallucinations. The survey asks about the nature of your visual impairment, your experiences of CBS (if any), and your visual imagination. For more information, visit https://tinyurl.com/sight-impairment-study.

In this episode, we recap the focus is on Charles Bonnet Syndrome (CBS), a condition where those losing or without vision experience visual hallucinations. Featuring interviews with Judith Potts, founder of Esme's Umbrella, and Dr. Gary Cusick from Louisville, Kentucky, the episode sheds light on the challenges of CBS, discusses available support, and emphasizes the importance of awareness and self-advocacy in navigating this aspect of vision loss.

Each year on 16 November it is Charles Bonnet Syndrome (CBS) Awareness Day highlighting how CBS affects many blind and partially sighted people with the experience of seeing visual hallucinations which can range from simple patterns to vivid scenes, such as faces, animals or landscapes. RNIB Connect Radio's Toby Davey was joined by RNIB ambassador Dr Amit Patel to find out more about Charles Bonnet Syndrome, how he first realised he was experiencing CBS and how he copes with the condition on a day-to-day basis.  There is a wide range of information and advice about Charles Bonnet Syndrome on the following pages of the RNIB website and you can always call the RNIB Helpline on 0303 123 9999 if you would like to chat with someone about anything related to sight loss. https://www.rnib.org.uk/your-eyes/charles-bonnet-syndrome-awareness-day/ (Image shows RNIB logo. 'RNIB' written in black capital letters over a white background and underlined with a bold pink line, with the words 'See differently' underneath)

If you have or know someone with Charles Bonnet Syndrome, and you would like to learn more about it, There is a podcast out there which could be helpful. Hubert has been speaking to Shaimond, the host of the podcast about how it has originated and what it's about.

✨Welcome to the Fairy Whispering Podcast, where Claire Sylvan Wand delves into the enchanting world of fairies and otherworldly beings. In this captivating episode, Claire is joined by Dr Neil Rushton, a fellow fairy researcher, experiencer and esoteric author. 

Now our David Hogg hears about a new study which needs your help…

Alice Findlay, RNIB Customer Voice Insight Co-ordinator shares the latest opportunities for blind and partially sighted people to get involved in with RNIB Connect Radio's Toby Davey. Opportunities highlighted this week included: Help the RNIB to review the Giant Cell Arteritis factsheet -  RNIB has a range of factsheets for a wide variety of eye conditions. And we're looking for people who can help us by reviewing our factsheet on Giant Cell Arteritis or GCA. By contributing a small amount of your time, you could support one of our key services teams by reviewing our GCA factsheet.  Is this factsheet useful, easy to read and detailed enough – or could we improve it? Your valuable feedback will make sure our eye health information is as helpful as possible for people diagnosed with this condition.  To take part and for more information email eyehealth@rnib.org.uk Would you like to take part in a podcast about sexual health for visually impaired people? SASH is a mental health and wellbeing charity focused on sexual health. They offer a range of services including counselling, coaching, peer support, training and workshops. They would like to invite you to join their podcast series on sexual health for visually impaired people. The podcast will take place on Monday 24 June from 1pm to 2:30pm. They are looking for volunteers to help them raise awareness, debunk myths, discuss barriers to accessing services and address misconceptions around relationships as well as the risk of domestic violence. Complimentary drinks and snacks will be provided. The recording will be taking place at their office at 30 Wardour street, London, W1D 6PT. To find out more and to take part in the recording do contact Sade via email sade.vassel@turning-point.co.uk Research participants needed for two studies at the Vision and Eye Research Institute (VERI) in Cambridge. VERI is part of Anglia Ruskin University in Cambridge and their researchers are looking for people willing to take part in two novel studies they are carrying out.  Study one - examining attention versus perception in individuals with low vision. The study will take place at VERI, Young Street, Cambridge and travel expenses of up to £50 will be covered for people willing to commute.  The study involves a combination of two visual examinations and two computerized tasks that will take about 90 minutes to complete. Your participation could make a significant impact on improving support for the low vision community.  Study two - researchers are specifically looking for people with experience of Charles Bonnet syndrome. This second study aims to understand how the brain creates visual hallucinations for people with Charles Bonnet Syndrome. The researchers will be measuring brain activity recorded by an EEG, but don't worry, it's completely non-invasive and harmless. The study will take place at Anglia Ruskin University in Cambridge and travel expenses of up to £50 will be covered for people willing to commute to Cambridge for the study. Your participation could contribute to research and support for those with Charles Bonnet Syndrome.  If you're interested in taking part in either study, please contact Natalie Assaf at Natalie.Assaf@aru.ac.uk for further details. To find out more about these and other Connect Voices opportunities along with how you can get involved with RNIB Connect Voices do visit- https://www.rnib.org.uk/connect-community/connect-voices-network/connect-voices-current-opportunities (Image shows RNIB logo. 'RNIB' written in black capital letters over a white background and underlined with a bold pink line, with the words 'See differently' underneath)

Creepypasta Scary Story

In today's Neuroscience Bite, we discuss Charles Bonnet syndrome - a rare disorder where people suffer extreme hallucinations related to top-down control over a damaged visual system. 

We take a short wander away from Biggleswade, over the county border into Hertfordshire in this episode. Nat Doig tells the tale of Blind George of Anstey. It's a folktale with a bit of everything, a secret tunnel, a blind fiddle player, a faithful dog, the devil, and a ghost.  Nat also explores myths and legends around blindness including busting some modern myths with her guest Paul Day. Nat and Paul discuss a neurological condition which affects many blind people, and could hold a clue to solving at least some ghost sightings. Paul also shares his experiences of going on a ghost hunt in a spooky tower with a spiral staircase. It's a slightly different episode to the usual Weird in the Wade but one that will be just as thought provoking possibly more so. For show transcript, notes and links for further information on the issues discussed in the podcast including Charles Bonnet Syndrome, please visit the show blog: https://weirdinthewade.blog/ You can find the show on social media here: https://linktr.ee/weirdinthewade You can email Nat at weirdinthewade@gmail.com If you'd like to support the show you can by the pod a coffee at: https://ko-fi.com/weirdinthewade Weird in the Wade is researched, written, produced and presented by Nat Doig Theme music Tess Savigear A huge thank you to Litha for granting permission for their song Blind George to play on this episode. You can hear the track here: https://www.litha-music.com/images/music/Blind_George.mp3 And Blind George's theme from: freesound 42953 Freqman gypsy violin variation

...and similar delusions. --- Support this podcast: https://podcasters.spotify.com/pod/show/chris-levine/support

Clare Aldworth, RNIB Insight Community Manager shares the latest opportunities for blind and partially sighted people to get involved in with RNIB Connect Radio's Toby Davey. Opportunities highlighted this week included: Join RNIB's Behaviour Change Panel This is a great opportunity to help to change public perceptions and understanding of sight loss, which is one of RNIB's key priorities. The aim is that through this increased understanding, we can bring about a change in public behaviours and ultimately make our society more accessible to blind and partially sighted people. Obviously if people don't understand the challenges, there isn't a mission of people doing anything about them. By joining the behaviour change panel you will be working alongside RNIB to make this happen. The panel is open to anyone with lived experience of sight loss. It's all online, so it doesn't matter where in the UK you're based. If you are interested in joining the Behaviour Change Panel or you have any questions, do contact our Campaigns Team via email - campaigns@rnib.org.uk The closing date for you to complete the expression of interest form is Friday 1 March 2024.  Reminder - Do you have experience of Charles Bonnet Syndrome? Are you comfortable in front of a camera?  The Health and Social Care Skills Development team at RNIB are looking for participants with lived experience of Charles Bonnet Syndrome to share their stories in order to help create content for video and podcast resources.  If you think you could help and are interested in finding out more, please email Winnie Smith at winnie.smith@rnib.org.uk Have you ever struggled to get the information you need about your medication, or a health concern? Too many blind and partially sighted people are provided with inaccessible health information. The RNIB want to change this by taking 10 minutes to share your experiences in the survey - Let's make health a level playing field. To find out more and take part in this important survey do email involvement@rnib.org.uk. To find out more about these Connect Voices opportunities and how you can get involved with RNIB Connect Voices do visit- https://www.rnib.org.uk/connect-community/connect-voices-network/connect-voices-current-opportunities (Image shows RNIB logo. 'RNIB' written in black capital letters over a white background and underlined with a bold pink line, with the words 'See differently' underneath)

In this episode, the focus is on Charles Bonnet Syndrome (CBS), a condition where those losing or without vision experience visual hallucinations. Featuring interviews with Judith Potts, founder of Esme's Umbrella, and Dr. Gary Cusick from Louisville, Kentucky, the episode sheds light on the challenges of CBS, discusses available support, and emphasizes the importance of awareness and self-advocacy in navigating this aspect of vision loss.

Do you still have visual dreams after sight loss? How can blind and partially sighted people get a good night's rest? We brought together writer, performer and comic Jasmin Thein, holistic practitioner and Visionary Projects and Campaigns Co-ordinator Nina Chesworth and RNIB Connect Radio's own Toby Davey to discuss the world of dreaming and sleep. To follow Nina on twitter and Instagram search @blind_but_sound, and visit her website www.blindbutsound.co.uk  Learn more about Charles Bonnet Syndrome by visiting charlesbonnetsyndrome.uk/ Image: Image shows the RNIB Connect Radio logo. On a white background ‘RNIB' written in bold black capital letters and underline with a bold pink line. Underneath the line: ‘Connect Radio' is written in black in a smaller font.

Alice Findlay, RNIB Customer Voice Insight Coordinator shares the latest opportunities for blind and partially sighted people to get involved in with RNIB Connect Radio's Toby Davey. Opportunities highlighted this week included: Do you have experience of Charles Bonnet Syndrome? Are you comfortable in front of a camera?  The Health and Social Care Skills Development team at RNIB are looking for participants with lived experience of Charles Bonnet Syndrome to share their stories in order to help create content for video and podcast resources.  If you think you could help and are interested in finding out more, please email Winnie Smith at winnie.smith@rnib.org.uk Creative Writing Competition  King's College London and RNIB are hosting a creative writing competition for blind and partially sighted writers, based on museum art or home objects. The theme is ‘See differently', celebrating different ways of seeing, beholding, and sensing museum artworks and everyday objects. This piece of creative writing can be based on a real experience, or serve as imagined storytelling, so long as it is grounded in visual or material culture as experienced by a person with sight loss. We are keen to explore and celebrate how people with sight loss experience and enjoy museums, art, and objects.   Your piece can take the form of prose or poetry, in text or audio form, with word limits of 1,000 words or 50 lines. The competition Deadline is 5pm on Friday 2 February 2024. Submissions should be emailed to ellen.adams@kcl.ac.uk using the subject heading ‘KCL RNIB writing competition'.  Research participants wanted for study looking at rail travel by passengers with sight loss Researchers at the university of Coventry are looking for participants to take part in a research project which looks at the experiences of visually impaired travellers and the aids, skills, and knowledge you use when travelling.   If you'd like to take part in the study, please register your interest as soon as possible by emailing Emily Nash at nashe5@uni.coventry.ac.uk To find out more about these Connect Voices opportunities and how you can get involved with RNIB Connect Voices do visit- https://www.rnib.org.uk/connect-community/connect-voices-network/connect-voices-current-opportunities (Image shows RNIB logo. 'RNIB' written in black capital letters over a white background and underlined with a bold pink line, with the words 'See differently' underneath)

For this My Macular and Me podcast we were joined by professor of ophthalmology, Noemi Lois, from Queen's University Belfast. She looks at the results of a recent trial for patients with diabetic macular oedema (DMO).The trial set out to test two types of laser for treating patients with DMO, one standard laser, which has been available for many years, and another much newer laser. It was found that the newer laser could clear up mild DMO without producing a burn on the retina, unlike the standard laser.The news of the trial is positive for those living with diabetes as it has found that this newer macular laser is a good treatment option.The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular and Me podcast to talk to us about Sorsby Fundus Dystrophy. For further information on Sorsby Fundus Dystrophy please visit our website: https://www.macularsociety.org/macular-disease/macular-conditions/sorsby-fundus-dystrophy/The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Esme's Umbrella have worked with a team of filmmakers to create a brand new film about living with Charles Bonnet Syndrome. 'Aspectum' has its first screenings on August 10th and Amelia talked to Judith Potts from Esme's Umbrella and Filmmaker Jack Morris to learn more. To learn more about Charles Bonnet Syndrome visit charlesbonnetsyndrome.uk To get in touch with Esme's Umbrella and express interest in attending the screenings email judith@charlesbonnetsyndrome.uk Image: RNIB Connect Radio Bright Green 20th Anniversary Logo

In this episode of the My Macular and Me podcast we are joined by Consultant Ophthalmologist and Clinician-Scientist, Professor Mariya Moosajee. She speaks to the Macular Society about her research into Charles Bonnet Syndrome, specifically in children. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Today, I'm joined by legendary film and sound editor Vivien Hillgrove to discuss her upcoming documentary, Vivien's Wild Ride. After being diagnosed with age-related macular degeneration, an eye disease that blurs central vision, life as Vivien knew it completely shifted. Her experience losing her eyesight transported her back to the confusion and isolation she felt as a pregnant teen who was persuaded into giving her daughter up for adoption. In Vivien's Wild Ride, she explores how secrets and sadness shape our lives and the freedom that's available when we finally release that shame. Vivien describes how she's been grappling with the reality of losing her sight, which is one of the most crucial senses that filmmakers rely on. After the initial shock and adjustment, Vivien has discovered that her loss of sight provides a unique perspective on blindness both as a condition and a metaphor. In our conversation, Vivien brings us back to one of the darkest periods of her life and talks about how her introduction to filmmaking brought her out of it. She shares stories of how her film community embraced and empowered her to live her truth and express it through art. Vivien's Wild Ride expands our understanding of loss, love, and healing. Listen, rate, and review to Art Heals All Wounds on Apple Podcasts, Spotify, Google Podcasts, Stitcher, Castbox, or on your favorite podcast platform.Topics Covered:●      Vivien's main motivation for creating a memoir documentary ●      The three stories that unfold in Vivien's Wild Ride●      Vivien's description of the ascent into creativity and Charles Bonnet syndrome, a condition that causes visual hallucinations ●      Processing grief and trauma through art ●      What Vivien hopes the audience will take away from Vivien's Wild RideGuest Info:●      Vivien's Wild Ride on Facebook ●      Vivien's IMDb ProfileFollow Me:●      My Instagram ●      My LinkedIn●      My Twitter●      Art Heals All Wounds Website●      Art Heals All Wounds Instagram●      Art Heals All Wounds Twitter ●      Art Heals All Wounds Facebook●      Art Heals All Wounds NewsletterPromoted Podcast:Crossed Wires 

In honor of International Women's Day, I wanted to interview the inspiring performance poet, Rhonda Lee. Also a Senior Editor Emerita at the University of Wisconsin, Published Author, International Award Winning Editor and Host of the Radio Literature Show. She was a single mom at 19, lived in Paris, has studied in the arctic, is always smiling, and she is blind.In today' interview Rhonda shares poignant stories from her life, including her experiences with visual hallucinations, known as Charles Bonnet Syndrome and a few of the challenges that came with losing her sight. She also shares her favorite biohacks, including which one led her to finding lasting happiness.And the best part comes when she shares a couple of her favorite short poems with us.I hope you enjoy this soothing interview...spoiler alert, she is also my Mom.I hope you enjoyed the show, and if you did please share the love with your friends and write me a review. Also, check out my other episodes with some engaging guests discussing Energy healing, Chakras, The Law of attraction, SelfLove, CBD, mushrooms, manifesting, Tantra and more.Resources:Guest Rhonda Lee can be reached: rhondabouthings@gmail.comTed Talk on Charles Bonnet Syndrome https://www.ted.com/talks/oliver_sacks_what_hallucination_reveals_about_our_minds?utm_campaign=tedspread&utm_medium=referral&utm_source=tedcomshareAmerican Council of the Blind https://www.acb.org/Host Michelle Schoenfeld https://www.michelleschoenfeld.comWritten and Produced by Michelle SchoenfeldOriginal Score by Bryce CashmanSound Engineer and Technical Consultant, Dan LetchingerPROMOs and Discounts:Alcohol Free WineTry Surely crisp and refreshing alcohol-free wine, made from California premium grapes. Click the link and use code[ NAMASTE] to save 15%! https://www.hisurely.com/?dt_id=34988Keto, vegan, and gluten-free friendly! Plus it's low sugar and tastes GREAT!In addition to being a wellness expert and spiritual teacher, I also cover: best tips on, meditation, happiness, sound bath, healing crystals, how to manifest, best new podcast, abundance, best retreat, holistic, CBD, how to find self love, love, reiki, astrology, acupuncture, Ayurvedic, yoga, CBD health benefits, The Law of attraction, vegan, how to balance your chakras, spiritual awakening, spirit guides, what is a Lightworker, Starseed, Tantra, Tantric sex, kundalini, EFT, Tapping, what is an empath, eastern medicine, wellbeing, best detox, juice cleanse, sound bath, Dosha, and shadow work.

Link to bioRxiv paper: http://biorxiv.org/cgi/content/short/2023.02.13.528288v1?rss=1 Authors: Suzuki, K., Seth, A. K., Schwartzman, D. J. Abstract: Visual hallucinations (VHs) are perceptions of objects or events in the absence of the sensory stimulation that would normally support such perceptions. Although all VHs share this core characteristic, there are substantial phenomenological differences between VHs that have different aetiologies, such as those arising from neurological conditions, visual loss, or psychedelic compounds. Here, we examine the potential mechanistic basis of these differences by leveraging recent advances in visualising the learned representations of a coupled classifier and generative deep neural network - an approach we call 'computational (neuro)phenomenology'. Examining three aetiologically distinct populations in which VHs occur - neurological conditions (Parkinson's Disease and Lewy Body Dementia), visual loss (Charles Bonnet Syndrome, CBS), and psychedelics - we identify three dimensions relevant to distinguishing these classes of VHs: realism (veridicality), dependence on sensory input (spontaneity), and complexity. By selectively tuning the parameters of the visualisation algorithm to reflect influence along each of these phenomenological dimensions we were able to generate 'synthetic VHs' that were characteristic of the VHs experienced by each aetiology. We verified the validity of this approach experimentally in two studies that examined the phenomenology of VHs in neurological and CBS patients, and in people with recent psychedelic experience. These studies confirmed the existence of phenomenological differences across these three dimensions between groups, and crucially, found that the appropriate synthetic VHs were representative of each group's hallucinatory phenomenology. Together, our findings highlight the phenomenological diversity of VHs associated with distinct causal factors and demonstrate how a neural network model of visual phenomenology can successfully capture the distinctive visual characteristics of hallucinatory experience. Copy rights belong to original authors. Visit the link for more info Podcast created by Paper Player, LLC

Anthony Peake is the author of 12 books. He has lectured across the UK and Europe and has also given talks in New York and Melbourne, Australia. He has appeared on national television in Germany and France and has been interviewed on numerous BBC local radio stations and nationally on BBC Radio Five Live. Here are the themes of four of Anthony's books most relevant to what we discuss in this interview. Is There Life After Death: The Extraordinary Science of What Happens When We Die (2006) Do you occasionally have that strange feeling known as déjà vu? Do you sometimes feel that you know what is going to happen next? Do you ever have a strong feeling that actions you are about to take are the right (or wrong) thing to do? All these perceptions may be everyday clues to your immortality. This book proposes that personal death is a scientific impossibility. Using the latest findings of neurology, quantum physics, and consciousness studies, Anthony suggests that we never die. This book will help you understand the reason for your life and how you can make it better next time. The Daemon: A Guide To Your Extraordinary Secret Self (2008) Appearing in Greek mythology, the Daemon is broadly understood as a guiding spirit which exists as one half of your split self. Anthony proposes that people consist of not one but two separate consciousnesses - everyday consciousness and that of The Daemon, a higher being that seems to possess knowledge of future events. Drawing upon phenomena such as déjà vu and near-death experiences, he explores the ways that our Daemon breaks through into our consciousness and can subconsciously impact upon our decisions. This book draws upon neurology, metaphysics and theology. It also follows the stories of famous figures, including Byron, Geothe, Jean Cocteau, and many others who have "felt a force outside themselves". The Hidden Universe: An Investigation Into Non-Human Intelligences (2019) From aliens or ghosts to the djinn, electric-voice phenomenon, and UFO abductions, this book is the most comprehensive and enlightening survey ever made of encounters with the "others" - intelligent, self-motivated beings that are clearly not human in their origins. In addition to fully detailing the history of these encounters, the book attempts a bold explanation (never before undertaken) of the true nature of these beings. The book will explore the increasingly frequent entheogen encounters facilitated by substances such as dimethyltryptamine, ayahuasca, 5-Meo-DMT, and LSD, as well as the beings encountered by individuals suffering from Alzheimer's-related Charles Bonnet Syndrome, young children's non-corporeal companions, and the seemingly independent beings met during lucid dreaming and near-death and out-of-body experiences. This model proposes that consciousness, far from being simply an accident of evolution, is the actual root source of the material universe. It suggests that at its most basic level everything that is seemingly physical is rendered into existence by consciousness. Cheating The Ferryman: The Revolutionary Science of Life After Death (2022) Is there life after death? This age-old question has plagued humankind from the moment we became self-aware, but do we now have enough evidence to answer it? This book reveals an extraordinary model of life after death—one that brings together ideas from ancient philosophy, neuroscience, quantum physics, and consciousness studies and manages to explain a number of seemingly mysterious experiences such as precognition, déjà vu, synchronicity, near-death experiences, and out-of-body experiences. It is called Cheating the Ferryman. This book is a much-awaited follow-up to Is There Life After Death, which introduced his revolutionary model. Since then, he has amassed more evidence, using new studies by world-leading researchers, theories from the likes of Stephen Hawking, Carl Jung, and Hugh Everette, together with testimonies of NDEs and precogni...

Judith Potts is the founder of Charles Bonnet Syndrome Charity Esme's Umbrella. She joined Amelia for Charles Bonnet Syndrome Awareness Day to talk more about the condition, how public awareness and support has changed over time, and what the charity is working on for the future. Visit the Esme's umbrella website at charlesbonnetsyndrome.uk Image: Cartoon umbrella with multi-coloured spots and text reading 'Esme's Umbrella / for everyone working for the greater awareness of / Charles Bonnet Syndrome'

Roger Cole, presenter of the Pure 70s and 80s shows joined Amelia to talk about his experience of Charles Bonnet Syndrome and how his perspective on the condition has changed over time. Image: RNIB Connect Radio logo 

Charles Bonnet Syndrome is a condition that's triggered by vision deterioration that causes visual hallucinations. It isn't well known and can be hard to diagnose, so we are going to look deeper into this eye disease today. Enjoy the show.

ow Charles Bonnet Syndrome affects your life Free help with home COVID test from Aira Taking a trip to a car show How to eat with chopsticks

Charlotte Jones, RNIB's National Involvement Coordinator shares the latest opportunities for blind and partially sighted people to get involved in. Opportunities highlighted this week included: Do you have Charles Bonnet Syndrome, and would you like to take part in research about it? Two visually impaired clinical psychology masters' students are looking for visually impaired participants to complete their survey on Charles Bonnet Syndrome.   You must be 18+ and have experienced some form of visual hallucinations directly linked to your visual impairment to take part. Deadline for completing the survey is 30 April 2022 and you could win a £25 voucher for taking part!  Do you have experience of counselling or psychotherapy as a blind or partially sighted person? Ella a blind trainee psychotherapist at Newman University in Birmingham is looking for blind and partially sighted people for her master's dissertation research looking into the experiences of counselling from adults who were born with a visual impairment or blindness or who were born with a condition that led to sight loss before the age of 10 years old. Participants need to have had at least one session of counselling or psychotherapy as an adult. The counselling/psychotherapy does not need to have been sought because of sight loss.  Would you like to share your experiences of zebra crossings? Construction company Jacobs Engineering Group are running an online focus group to find out more about blind and partially sighted people's experiences of navigating zebra crossings. They are wanting to know whether you use, or choose not to use, zebra crossings, and would like your help to identify potential improvements to zebra crossings. The focus group will take place from 6 to 8pm, on Wednesday 16 March via Zoom.  People who participate will be given a £20 shopping voucher. To find out more about these items and how you can get involved with RNIB Connect Voices do visit - https://www.rnib.org.uk/rnibconnect/connect-voices. (Image shows RNIB logo. 'RNIB' written in black capital letters over a white background and underlined with a bold pink line, with the words 'See differently' underneath) 

This content was recorded during a Retina UK webinar on Thursday 27 January 2022. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/Lz0frr1KydQ Professor Ffytche will provide an explanation of what Charles Bonnet Syndrome is, the science behind it, and share some potential coping strategies for people who experience visual hallucinations. Professor Ffytche joined the Department of Old Age Psychiatry at Kings College London in 2006. He is Professor of Visual Psychiatry and Lead Consultant Psychiatrist to the Visual Perceptual Disorder clinic at the South London and Maudsley NHS Foundation Trust, a national specialist service for patients with visual hallucinations. He researches brain mechanisms of vision and how they go wrong to cause visual hallucinations, visual illusions and related symptoms and treatments for such experiences. He has published over 100 articles in the scientific and lay literature with over 4,000 academic citations. He plays a leading role in patient and public education for Charles Bonnet syndrome (visual hallucinations in eye disease) as medical advisor to Esme's Umbrella and has helped develop information resources on visual hallucinations for the NHS, charity sector and eye-health professionals.

Since our very beginnings, human beings from all civilizations across the globe have encountered the Others - intelligent, self-motivated beings that are clearly not human in their origins. This book offers the most comprehensive survey ever made of such otherworldly visitors, from gods, angels, demons and djinns to hobgoblins, poltergeists and ghosts to UFOs and aliens. In addition to fully detailing the history of these encounters, the book attempts a bold explanation (never before undertaken) of the true nature of these beings. The book will explore the increasingly frequent "entheogen" encounters facilitated by substances such as dimethyltryptamine, ayahuasca, 5-Meo-DMT and LSD, as well as the beings encountered by individuals suffering from Alzheimer's-related Charles Bonnet Syndrome, young children's non-corporeal companions, and the seemingly independent beings met during lucid dreaming and near-death and out-of-body experiences.Anthony Peake grew up on the Wirral, near Liverpool, England. He was educated at Wirral Grammar School, Warwick University and the London School of Economics. He is a member of the Institute of Noetic Sciences, The Scientific & Medical Network and the Society for Psychic Research.https://www.anthonypeake.com/https://www.youtube.com/c/AnthonyPeak...Join this channel to get access to perks:https://www.youtube.com/channel/UCHzW...Conflict Radio - Discord Linkhttps://discord.com/invite/MykTtkvDRMConflict Radio Flashback #1 - The Hidden Universe with Anthony Peakehttps://conflictradio.net/

Jennie is joined by guest Kim Lake for an education in Charles Bonnet syndrome. They compare notes on seeing things that aren't really there, from Superman to dead people, and the resulting precarious situations.

16th November is Charles Bonnet Syndrome Awareness Day. Earlier in the year, our Ellie Marsh caught up with Esme's Umbrella Founder to find out what support they can offer. If you or someone you know had Charles Bonnet Syndrome you can find help and support on the Esme's Umbrella website here: www.charlesbonnetsyndrome.uk Image: Esme's Umbrella Logo, an umbrella with small polka dots in different colours. 

How would you live if suddenly a terrifying tiger appeared in front of you now and then, or if dead people used your sofa or with beautiful flowers pouring into your cake dough on weekly or even daily basis?  You know you aren't losing your mind, so what is it? Did such hallucinations become more frequent during the covid-19 pandemic? Who can help? Can the hallucinations go away? An estimate of 1 million people in UK are affected by Charles Bonnet Syndrome and about 4 millions will be in few years. "Charles Bonnet syndrome (CBS) is a condition that causes visual hallucinations in patients without any mental illnesses. CBS is characterized by the presence of vivid, complex and recurrent visual hallucinations, and do not occur in the setting or as part of delirium or other psychological illnesses. The condition is present in patients who have visual loss due to age-related macular degeneration (AMD), cataracts and/or other ocular diseases that influence vision" (Stojanov, O.,2016). We talk about it with Judith Potts, who founded Esme's Umbrella to create awareness about CBS, to fund research in this field and to offer broader support to those who are affected by the syndrome. As a student in Sport Psychology at Roehampton University, London, UK, I have read an interview with Ms. Potts on The Psychologist September 2021 issue.   I was very touched by the unfolding story and I immediately thought that as a student I should learn more about CBS and that as Martial Attitude Training is developing, this should be an aspect to be considered closely.   Follow Judith Potts on TWITTER and on INSTAGRAM Find out more on Esme's Umbrella WEBSITE Support Martial Attitude on PATREON

In this podcast, Tom Walker talks to Dave Lloyd, a travel writer from New Brighton, about his experiences of losing his sight after a stroke. It started with what Dave was told were migraines but was in fact a blood clot on his visual cortex. In addition to losing a significant amount of his vision, Dave also had to contend with temporary Charles Bonnet Syndrome, visual hallucinations.

On this episode of What Makes Us Human, we discuss Charles Bonnet Syndrome, and J.R. gets a Don McLean song stuck in his head. Connect with us on social media! @WMUHPodcast Email: WMUHPodcast@gmail.com music: "Lanky" by Blue Dot Sessions freemusicarchive.org

If you or someone you know had Charles Bonnet Syndrome you can find help and support on the Esme's Umbrella website. Ellie has been catching up with the founder of the campaign to find our more about how it started, where it's at and where it's going...To find out more, visit their website here: www.charlesbonnetsyndrome.ukImage: Esmes Umbrella Logo, an umbrella with small polka dots in different colours. 

If you have Charles Bonnet Syndrome and want to speak to other people who also have the condition you might want to pay attention, Ellie Marsh has been talking to the organisers of Esme's Friends who run groups for people with CBS...  To find out more, you can visit their website here: www.charlesbonnetsyndrome.uk Image: Esme's Umbrella logo, an umbrella with different coloured polka dots 

Up until the last several years, Kimberley Lake lived a pretty typical life; a married mom, holding down a stable office job... but for reasons not fully known her life changed dramatically when almost in an instant she lost her vision almost fully. As you will hear Kim describe in this episode, her vision loss obviously created a tremendous amount of change in her life, but it also had a very odd side affect. Kimberley has repeatedly experienced the affects of Charles Bonnet Syndrome. If you are unfamiliar with CBS, like I was until last week, Charles Bonnet Syndrome is a condition in which people who recently lost their version experience vivid, and often intense visual hallucinations. In many cases, the hallucinations are patterns or objects appearing unexpectedly, however the hallucinations can also be horrific. Kim has seen Rats, spiders, Donald Trump, and even a corpse in her bed. Tonight, in this episode, Our guest Kimberly lake will share the story of her vision loss, and her visions. Links: Kim Lake on Twitter: https://twitter.com/KimberleyLake Charles Bonnet Syndrome: https://en.wikipedia.org/wiki/Visual_release_hallucinations Canadian National Institute for the Blind: https://www.cnib.ca Credits: Musical Theme - Noir Tokyo by Monty Datta Provide feedback and comments on the episode: nighttimepodcast.com/contact Nighttime Links: Premium Feed: https://www.patreon.com/nighttimepodcast Website: https://www.nighttimepodcast.com Twitter: https://twitter.com/NightTimePod Facebook: https://www.facebook.com/NightTimePod Instagram: https://www.instagram.com/nighttimepod Youtube: https://www.youtube.com/nighttimepod Support the show: https://www.patreon.com/Nighttimepodcast See omnystudio.com/listener for privacy information.

In this Episode: We'll hear about tear gas and contact lenses. Research on an increase in Charles Bonnet Syndrome as a result of COVID19 isolation, and How to tell when it looks like rain, when you can’t look. The transcript of this episode will be available at the link below. Tactile Traveler 17 Transcript Link The goal of this podcast is to empower blind and low-vision people to explore the world, and help our sighted friends see the world in a new way. Frequently, as people lose their eyesight, they become more and more isolated. The Tactile Traveler hopes to empower people, not only to go literally around the world, but around the block to new adventures in their lives. All episodes of this program are available at anchor.fm/thetactiletraveler We’d like you to weigh in on how were doing. Please let us know by sending an e-mail to thetactiletraveler@gmail.com we spell traveler the American way with one “L.” Transcripts of this program are also available for our deaf listeners by searching The Tactile Traveler in any search engine. This program is also being broadcast on the Audio Information Network of Colorado and in additional states. It’s also available by typing The Tactile Traveler into any search engine and available wherever you get podcasts and by asking your smart speaker for THE TACTILE TRAVELER podcast.

Kimberley Lake is spreading the word about a common — but relatively unknown — condition called Charles Bonnet Syndrome, which can cause people to experience visual hallucinations that are unrelated to any mental health disorder.

The RNIB have announced big changes to their braille library service. From next month braille books will be smaller, slimmer and newly printed on demand. Users won't even have to return the books but can instead choose to upgrade by buying a more robust spiral-bound version. The new Census 2021 forms are dropping through letterboxes and the organisers, the Office for National Statistics, are promising it will be the most accessible yet. We'll hear from their Deputy National Statistician Iain Bell about what they've got planned. A telephone contact centre is available on 0800 141 2021 in England and 0800 169 2021 in Wales. And the TV soaps often seek to reflect life back at us by featuring storylines about illness or medical conditions. Coronation Street is the latest to do that with their portrayal of Charles Bonnet Syndrome - a condition affecting people with sight loss that often involves frightening hallucinations. We talk to the actor Richard Hawley who plays the newly-diagnosed Johnny Connor in the soap.

  Learn more about becoming a Certified Insurance Counselor (CIC). Take your agent status to expert level with this insurance industry designation!   Read the text version.   See what Ritter Insurance Marketing has to offer!   Mentioned in this episode:   4 Perks of Being a Part-Time Insurance Agent Certified Insurance Counselor Program IA&B Certified Insurance Counselor Program Info Ritter Insurance Marketing Official Website Top 5 Insurance Designations   More episodes you’ll like:   7 Powerful Practices for Selling Prescription Drug Plans Get ready to improve your PDP selling strategy! We cover 7 best practices for insurance agents selling Medicare Part D prescription drug plans. These tips will help you save time and they're easy to implement. Best Practices for Writing an Email to Your Insurance Clients Write emails with confidence! We outline the best (and easy to implement!) practices for insurance agents to use when emailing clients. Medicareful 2020 Year-in-Review: Here’s What We Accomplished What is Medicareful? How does it work? If you've been looking for a tool that combines online enrollment, client-facing plan quotes, drug cost estimates, a free CMS-compliant website, and more... don't miss this episode! We review updates to the Medicareful platform over the past year, and what our agents achieved while using it!   Articles to Share with Your Clients:   Charles Bonnet Syndrome: Diagnosis and Care If you have impaired vision, there is a chance you may develop Charles Bonnet Syndrome, a condition where you hallucinate. What exactly causes Charles Bonnet Syndrome and is there a treatment? Do Doctors Have to Disclose Conflicts of Interest? Conflicts of interest can influence a doctor's decision-making and ruin patient trust. Reporting and sharing medical conflicts of interest are essential to protecting against them. The Benefits of Healthy Proteins Proteins are an important part of any meal, but too much can be unhealthy for our hearts. Here's why proteins are so healthy for us and sources of lean protein to incorporate in your diet.   The latest from Ritter’s Blog:   Ritter is More Than Medicare & Our New Team Brand Shows Why When selling Medicare Advantage and Medicare Supplement policies, it’s important to remember that More than Medicare products are the missing pieces of the puzzle. Medicare Advantage Trial Rights Explained for Agents If you have a client who enrolled in a Medicare Advantage plan but wants to go (back) to Original Medicare, they may qualify for a Medicare Advantage trial right! This would allow them to update their coverage outside of the Annual Enrollment Period. Ritter Continues Expansion, Acquires Ohio-Based Quick Insured Brokerage Ritter has announced its merger with Ohio-based Quick Insured Brokerage (QIB), an independent wholesale brokerage agency.   Subscribe & Follow:   Apple Podcasts Google Podcasts Overcast Podbean Spotify Stitcher   Connect on social:   Facebook Twitter YouTube LinkedIn  

0:00:00 Opening Announcement 0:07:50 Speaker Introduction, Dr. Suleiman Alibhai 0:10:32 Guest Speaker, Dr. Stephen Pappas, Jr., discusses Age-related Macular Degeneration medical and functional aspects > 0:26:30 Structured Q&A w. Dr. Alibhai > 0:26:47 Does AMD lead to blindness? > 0:31:07 Charles Bonnet Syndrome > 0:37:04 Eye and vision strain > 0:46:10 Surgery or implants? > 0:51:15 Open Q&A - AMD v. Stargardts; self-monitoring tests; visual v. macular atrophy; stem cell research; RP v. AMD; OTC supplements 1:21:35 Closing Announcements

Visionary UK works with national, and grass roots, sight loss charities from across the UK to improve the every day lives of blind and partially sighted people. Esme's Umbrella is a Visionary partner and provides advice, support and telephone groups for people who are living with Charles Bonnet Syndrome. RNIB Connect Radio's Allan Russell spoke to Fiona Sandford, Visionary UK CEO, and Judith Potts, from Esme's Umbrella, to learn more about the misunderstood condition and how the telephone groups have become a lifeline for many.Image: Fiona Sandford 

Coronation Street recently became the first UK soap to portray a character living with Charles Bonnet Syndrome (CBS), a common condition among people who have lost their sight.  RNIB Connect Radio presenter Roger Cole, has also been living with CBS for a number of years and he shares his own experience with producer Barry Snell.

Devotees of Coronation Street will no doubt know that the character, Johnny Connor, is experiencing hallucinations caused by the little-known eye condition, Charles Bonnet Syndrome. In this podcast, Tom Walker talks to Judith Potts from Esme's Umbrella and Nina Chesworth about their work with the Coronation Street script-writers to understand the eye condition. Judith's organisation supports people like Nina who have CBS. Judith tells Tom about the level of detail the script-writers needed to go into and Nina talks about her conversations with the actor Richard Hawley, who plays Johnny Connor.

Welcome my lovelies to your Friday episode. Today we listen to finale of Charles Bonnet Syndrome – is Andrew truly insane? Is what he’s seeing visible to others? And does he make the right decision in how to manage his hallucinations…if they really ARE hallucinations. Support the Podcast and help it grow!

2020 has been hard in so many ways, but like in any trauma or tough time in life, how we cope is often determined by the story we choose to tell ourselves. Here's a moving podcast illustrating how to find strength when we keep going anyway. Accepting who we are and where we are at, gives us so much power and once we find that place, we begin the journey of healing and freedom! This episode is perfectly timed as so much change has occurred this year in all of our lives. Much of it for the better, but also with lots of trauma and sadness in the mix. Nina Chesworth's story is a real example of courage, determination and resilience. She has had to overcome trauma in a way that none of us would ever imagine. Having become severely short sighted after having the flu when just 2 years old, had multiple operations that would succeed and then fail after a time taking her through years of torture; then in her adult years, had 2 separate accidents that each involved losing an eye. She kept strong for everyone else, until the final accident when she came apart and fell into a deep depression. Her resilience however, unfailing, eventually found the lifeline to pull her back out. She’s an inspiration and a true example of HOW to keep going when we are struggling to see the way forwards …. In this incredibly inspiring episode we talk about how Nina has developed practices to maintain a good place when it comes to her mental health, how she manages the ongoing stress that comes from Charles Bonnet Syndrome, a syndrome of hallucinations that comes about with sight loss; she talks about how her friends and family have been her support line and how she's had to rebuild her life over and over, clinging on to the determination that protects her independence and ability to be productive, creative, help others and most importantly be a mum. Nina has a degree in Design and art direction despite her visual impairment at the time, started her own business making her own handmade jewellery, and began the creative craft café in Manchester where people could come and express their creativity in order to help their mental health. Nina continues to support others with their mental health all the while adjusting and working with her own. Our mental health is an ongoing journey and the tips and insights that she shares during this episode are doable for us all. Do check out The Bridge and Sister Stories  so if those sounded like they could be helpful to you, definitely take a look. Also remember that we have a Facebook group page where you are always safe to come and offload to those who will support you, and please remember, as Nina said, things always get better. Nina's Blog - www.blindbbutsound.co.uk Twitter account @blind_but_sound Instagram and Facebook as @NinaChesworth  

In this episode of Eye Research Matters, we speak to supporter Amit Patel about living with Charles Bonnet syndrome (CBS).CBS is a common side-effect of sight loss in which people experience visual hallucinations.Fight for Sight is funding two research projects to investigate the cause of the visual hallucinations associated with CBS, with the hope of eventually finding a cure.

Bethany is opening up our world to the weird and rare disease that causes frightening hallucinations: Charles Bonnet Syndrome. Specifically, she covers one really fascinating case where a man kept seeing the creepy girl from 'The Ring!' Then, Kathleen covers the topic of “invisible labor”: all of the work you do to hold life together, even though it doesn’t pay you a cent. How can you make sure you’re getting recognized, and that you’re recognizing the other people in your life in turn? Ya gotta eat your damn dinner, even if it's garbage gruel!  ---------- Check out our merch! —> https://store.dftba.com/collections/an-acquired-taste-podcast  ---------- Please support the companies that support us!  Brüush - Brüush delivers premier sonic wave technology. Without the markups “big electric toothbrush” tacks on. It cleans your teeth at 31,000 movements a minute. Manual toothbrushes top out at just 300! Try it ninety days risk-free—and get a two-year warranty. Get 15% off your Brüush when you use promo code TASTE at bruush.com (http://bruush.com/)   ThirdLove - ThirdLove knows there’s a perfect bra for everyone, so right now they are offering our listeners 10% off your first order! Go to ThirdLove.com/TASTE (http://thirdlove.com/TASTE) now to find your perfect-fitting bra… and get 10% off your first purchase!  Rothys - Rothy’s has kept over 60 million single-use plastic bottles out of landfills and transformed them into their signature thread—which is then knit into beautiful, sustainable products. Check out all the amazing shoes and bags available right now at Rothys.com/TASTE (http://rothys.com/TASTE)   ---------- BETHANY’S SOURCES: -https://rarediseases.info.nih.gov/diseases/10343/charles-bonnet-syndrome -https://www.mayoclinic.org/tests-procedures/transcranial-magnetic-stimulation/about/pac-20384625 -https://www.brightfocus.org/macular/article/charles-bonnet-syndrome-and-macular-degeneration -TED Talk: “What hallucinations reveal about our minds,” Oliver Sacks https://www.youtube.com/watch?time_continue=627&v=SgOTaXhbqPQ&feature=emb_logo -https://www.mja.com.au/journal/2010/193/3/frightening-visual-hallucinations-atypical-presentation-charles-bonnet-syndrome -https://www.nercuk.org/living-with-the-nightmare-that-is-charles-bonnet-syndrome -https://www.independent.co.uk/news/health/charles-bonnet-syndrome-treatment-cure-blind-visions-research-a9659776.html?utm_term=Autofeed&utm_medium=Social&utm_source=Twitter#Echobox=1596999110 -https://www.independent.co.uk/news/health/charles-bonnet-syndrome-treatment-cure-blind-visions-research-a9659776.html?utm_term=Autofeed&utm_medium=Social&utm_source=Twitter#Echobox=1596999110 -https://www.aop.org.uk/ot/science-and-vision/research/2020/08/11/fight-for-sight-to-fund-two-studies-into-charles-bonnet-syndrome -https://nerdist.com/article/nightmare-disease-charles-bonnet-syndrome-ring-scary/ KATHLEEN’S SOURCES: -https://mashable.com/article/what-is-invisible-labor/ -https://www.mindbodygreen.com/0-16901/how-to-tell-your-partner-you-need-alone-time-without-getting-in-a-fight.html -https://www.ourfamilywizard.com/blog/5-ways-get-kids-helping-around-house -https://www.workingmother.com/10-proven-ways-to-get-your-husband-to-help-more-with-mental-load-and-chores

In this podcast i am talking about a subject and that subject is about what is Charles bonnet syndrome? I am going into my answer for this question and I am explaining what Charles bonnet syndrome is and what it is when someone has a detached Retina and then they are able to experience hallucinations of either people or things being there when it is not but they may think it is there. I am talking about how some completely blind or visually impaired people are able to experience this and how it is common to experience this I as well talk about if I experience this or not

Vision is a complex process involving light rays, special nerve cells and electrical signals sent to the brain, which processes the information and tells us what we're seeing. But even tiny disruptions to any part of this system can result in remarkable visual problems. Neurologist, Dr Guy Leschziner, meets 25-year-old filmmaker Oli, who's only recently discovered something alarming: he's missing half his vision in one eye - probably caused by a stroke he never knew he had. We hear from Dawn, whose eyes are working properly and yet she's almost completely blind. Her visual problems are caused by damage to a vital nerve connecting her eyeballs and her brain. Susan describes how her epilepsy is causing visual distortions that mean she can see through a person as if they were transparent. And we meet Nina who's been robbed of her sight after two separate accidents. And yet, she sees colours and terrifying images of zombie faces. She discovers she has Charles Bonnet Syndrome – visual hallucinations caused by loss of sight Through the extraordinary experiences of these individuals, we learn how vision is not like a video camera, a straightforward process of turning light into a picture. Produced by Sally Abrahams for the BBC World Service. Photo: Dawn with her dog in the garden.Credit: BBC

Charles Bonnet Syndrome is sometimes called the ‘plaything of the brain’ for the blind and visually impaired. The syndrome isn’t associated with mental illness or dementia, yet people with it are able to ‘see’ things - like little wriggling children in pink and white pyjamas, or a goat riding on a bike through their lounge room. 

Charles Bonnet Syndrome is sometimes called the ‘plaything of the brain’ for the blind and visually impaired. The syndrome isn’t associated with mental illness or dementia, yet people with it are able to ‘see’ things — like little wriggling children in pink and white pyjamas, or a goat riding on a bike through their lounge room.

Conflict Radio - Episode 12 The Hidden Universe with Anthony PeakeSince our very beginnings, human beings from all civilizations across the globe have encountered the Others - intelligent, self-motivated beings that are clearly not human in their origins. This book offers the most comprehensive survey ever made of such otherworldly visitors, from gods, angels, demons and djinns to hobgoblins, poltergeists and ghosts to UFOs and aliens. In addition to fully detailing the history of these encounters, the book attempts a bold explanation (never before undertaken) of the true nature of these beings. The book will explore the increasingly frequent "entheogen" encounters facilitated by substances such as dimethyltryptamine, ayahuasca, 5-Meo-DMT and LSD, as well as the beings encountered by individuals suffering from Alzheimer's-related Charles Bonnet Syndrome, young children's non-corporeal companions, and the seemingly independent beings met during lucid dreaming and near-death and out-of-body experiences.Anthony Peake grew up on the Wirral, near Liverpool, England. He was educated at Wirral Grammar School, Warwick University and the London School of Economics. He is a member of the Institute of Noetic Sciences, The Scientific & Medical Network and the Society for Psychic Research.https://www.anthonypeake.com/Be sure to check out our new website at https://conflictradio.net/

This weekly addition to the PAINE Podcast is a quick review and history of medical eponyms

In this episode, we examine at an increase in Charles Bonnet Syndrome symptoms for some people who are social-distancing, and the way we might be able to reduce that increase. An interview with last year’s winner of the James Holman prize for blind ambition. A way to prevent hurting your back if you’re blind in one eye. A cell phone accessory that takes the stress out of traveling, and tips on how to keep your guide dog, and pet dogs in tip-top shape while social-distancing. For a transcript of this episode, click the link below: TACTILE TRAVELER 6 https://docs.google.com/document/d/1mN1rXTwAcdobNCZtS-aqBEa6Iqsr0wlBP-D4Jb-jTBU/edit?usp=sharing

Dr. Harald Gjerde reads his poem called "Le fou Bonnet." The poem is written from the perspective of a man with Charles Bonnet Syndrome, which causes complex visual hallucinations. Dr. Gjerde is a fifth year ophthalmology resident at Dalhousie University in Halifax Nova Scotia. To read his article, published in CMAJ: www.cmaj.ca/lookup/doi/10.1503/cmaj.190276 ----------------------------------- Music: I Miss You, YouTube audio library ----------------------------------- For more stories like this one, get your copy of CMAJ’s Encounters Book. This anthology of prose and poetry of some 100 Canadian authors including Drs. David Goldbloom, Shane Neilson, Allan Peterkin and Monica Kidd, has been specially curated and includes a study guide. shop.cma.ca/products/encounters ----------------------------------- Subscribe to CMAJ Podcasts on Apple Podcasts, iTunes, Google Play, Stitcher, Overcast, Instacast, or your favourite app. You can also follow us directly on our SoundCloud page or you can visit www.cmaj.ca/page/multimedia/podcasts.

Brief contemplation on whether there is any meaning to reality at all, and how it relates with our programmed minds. Links mentioned in the video: Charles Bonnet Syndrome: https://youtu.be/jNhnhD8ecGY Two different mind processes in our minds: https://youtu.be/wfYbgdo8e-8 Illusionist show: https://youtu.be/Jy0T-55dru4 --- Send in a voice message: https://anchor.fm/armunnrigh/message

Sometimes, your eyes lie...sometimes...***Credited to Mr. Stuff, with guest narration by Nate Dufort, Danielle Hewitt, and Owen McCuen***Check out Nightmare Cinema at crankedupfilms.com/NightmareCinema***New $5+ patrons at Patreon.com/Creepypod get a limited edition logo lapel pin on top of other rewards!***You can also subscribe to us on YouTube:https://www.youtube.com/creepypod***Produced by Steve Blizin, Puzzle Audio***Title music by Alex Aldea***Artwork by Dakota Miller ***Intro/Outro Narration by Joe Stofko See acast.com/privacy for privacy and opt-out information.

In the run up to the first ever Charles Bonnet Syndrome patients day, RNIB Connect Radio's Basil Oxtoby spoke to Judith Potts, founder of Esme's Umbrella about the syndrome.

This episode is all about Charles Bonnet Syndrome, a very strange visual phenomenon most people will never see and even we can barely imagine. It's possibly very common, but little discussed, and it's pretty freaky.  Here in the not no gnome zone, which we know you know is what it's called because that's what we're always calling it, we dive deep into the mind for another Goose Chase!

Join host, Greg Carlwood, of The Higherside Chats podcast as he talks consciousness, altered states, and the Pleroma with returning guest, Anthony Peake. While we love talking about the various brands of high strangeness out there, a major unifying component to these mysterious encounters with aspects of the other side is: us. This is because all of these experiences come through the lens of the human perception. And of course, the mainstream often uses that fact as an excuse to dismiss these strange occurrences entirely, which is wrong, but it's still a fact that shouldn't be ignored. What role does human consciousness play in these situations, or any situation for that matter? Back in the THC saddle after four long years, today's guest Anthony Peake is one of the kings of consciousness research. He's written several books along the way, but most recently his decade plus study of reality, the mind, and altered states have all come together in his latest masterpiece, "Opening the Doors of Perception: The Key to Cosmic Awareness". 2:11 With his latest work being a play on Aldous Huxley's famous "Doors of Perception" written back in the 1950's, Peake choose the title "Opening the Doors of Perception". He "believed the time has come to re-evaluate the model of perception suggested by Huxley and to view it through the lens of our modern science". Greg and Anthony discuss where they see the greatest need for updating and what some of the biggest insights have been since Huxley's time. 10:42 While a lot of people in the alternative realm approach consciousness studies through the examination of out-of-body and near death experiences or psychedelic and entheogen use, very few researchers have examined the connection with conditions such as migraines, epilepsy, and schizophrenia. With a cross-pollination between several areas of study, Peake's latest book addresses these neglected conditions and how they relate to our understanding of consciousness, from an all encompassing perspective using his vast scope of knowledge and research to connect to dots. Listen as he and Greg discuss the uphill battle academia faces to expand it's worldview beyond materialism to include other possible paradigms in the study of consciousness. 18:10 Greg and Anthony discuss modern encounters with the Greys and how they appear to share similarities to old stories of fairy folk and little people. Oddly enough, these reports seem also to coincide with people suffering from Charles Bonnet Syndrome, begging the question is there something more to this? With personal anecdotes in hand, Anthony walks listeners through the importance of understanding CBS and it's perspective role in consciousness and death. 36:13 Although the idea of "hallucinations" can be a loaded term, there is a possibility that these observed entities and beings are real but unseen to brains in neurotypical states. Greg and Anthony address the anomaly of UFOs leaving physical traces or people found with implants and rectify what the monoculture marginalizes as hallucinations. 43:27 No conversation involving consciousness is complete without adding Dimethltryptamine into the mix. With other researchers citing a connection between multi-generational alien abductions and experiences being linked to a possible heredity condition involving DMT dumps, Greg and Anthony discuss these theories and how DMT fits into the big picture. 54:55 During his research, Peake found that schizophrenia is a decidedly common illness, affecting almost 1% of the global population, that sweeps through every continent and all cultures. Greg and Anthony discuss the implications of this in regard to the causes and functions of schizophrenia. 1:03:18 Because Peake has been able to integrate research from a variety of fields into his studies, he and Greg discuss the role of magic practitioners and esoteric traditions by giving context to their claims of communicating with entities and bei...

What would it be like to find your vision was suddenly infected by strange apparitions?  Lines, shapes, whole buildings, faces, and lizards crawling up the wall. All inventions of the condition called Charles Bonnet Syndrome. No, you're not going mad, these are tricks that the visual system sometimes plays. Rod interviews Scot Muirden, director of the Charles Bonnet Syndrome Foundation, and Ian Lawther who shares some remarkable stories of his experience with CBS. Charles Bonnet Syndrome is much more common than you might think. If you have vision loss, or know somebody who has, a simple question can make a huge difference. Too many people live in fear that their mind is going, and don't want to talk about it. Even the medical profession are generally not well informed. We also recommend Scot Muirden's Ask Fuzzy column on CBS Oliver Sacks TED talk. An excellent Damn Interesting article Twitter #FuzzyLogicSci

Up to half a million people in the UK could have it, but it's a condition that hardly anybody has heard about: Charles Bonnet Syndrome. It happens to people who are losing their sight through age-related macular degeneration, cataracts, diabetic eye problems or glaucoma. They see vivid and often frightening visual hallucinations and these images are soundless. Judith Potts' mother Esme was in her 90's when she eventually admitted to her daughter that she was seeing frightening images of goblins and Victorian children all around her. Judith had never heard of the condition and as she tells Dr Mark Porter, neither had any of the health professionals taking care of her mother. Shocked that there was so little awareness about something that is so common, she set up an awareness group, Esme's Umbrella. Dr Dominic Ffytche, Clinical Senior Lecturer at King's College London's Institute of Psychiatry and an expert in visual hallucinations, tells Mark that a key area of research is why some people have Charles Bonnet Syndrome and others don't. Co-proxamol, or Distalgesic as it's better known, was a common drug for mild to moderate pain in the 1990's. But a decade ago, a review by the Medicines and Healthcare Products Regulatory Agency (MHRA) decided that it wasn't a good painkiller and it had very worrying side effects. Its licence was withdrawn and doctors were urged to switch patients onto different medication (although it could still be prescribed on a "named patient" basis). Dr Andrew Green, Chair of the Clinical and Prescribing arm of the GP committee of the British Medical Association tells Mark he's disturbed that nearly ten years after the licence was withdrawn, thousands of patients are still being prescribed co-proxamol at a high cost to the NHS while Bedfordshire GP Dr John Lockley defends continued and careful prescribing for a tiny number of patients who can't get relief from other medication. In a week in which hundreds of thousands of people have signed a petition calling for more children to receive the Meningitis B vaccine, Dr Margaret McCartney talks to Mark about the tricky decisions involved in planning immunisation programmes. Traditional bedside paper charts, which record and monitor patients' vital signs, have been replaced in Oxford hospitals with smart PC tablets. Clinical staff enter patients' blood pressure, heart rate and temperature on the tablet and the new "smart" system provides an early warning traffic light system, alerting them if there's a deterioration in the patient's condition. This means clinicians can prioritise care and another major bonus is that the same information is available, at the touch of a button, to medical staff across Oxford's hospitals. The project is called SEND - System for Electronic Notification and Documentation - and it's a collaboration between the University of Oxford and Oxford University Hospitals NHS Foundation Trust. Mark goes to Oxford and with intensive care consultant and SEND Project Leader Dr Peter Watkinson, sees how the new paperless system is working.

Joe, Kevin, and Toren take a look at looking, including how vision works, and the "supervision" of tetrachromacy. Then the amazing eyes of the animal kingdom, including giant squid and the mantis shrimp, plus the full-body "eye" of the Ophiocoma Wendtii, visual defects like floaters, non-24-hour-sleep-wake-disorder, surfer's eye, and Charles Bonnet Syndrome. Music: "I Just Can't See For Looking" by Nat King Cole Images Videos http://www.youtube.com/watch?v=ze8VVtBgK7A http://www.youtube.com/watch?v=RM9o4VnfHJU

In this programme, Geoff Watts meets researchers attempting to unlock the mysteries of hallucination as well as some of those who experience the phenomenon. Geoff visits Dr Dominic Ffytche of the Institute of Psychiatry in London, and undergoes a stroboscopic experiment designed to induce hallucinations in subjects whilst their brains are being scanned. We hear some of the vivid accounts from hallucinators, including Doris, who has macular degeneration. Over the last year, her failing eyesight has resulted in an array of objects and images appearing before her with startling clarity, from relatively benign baskets of flowers to the rather more distressing sight of dark, haunting figures sitting by her bed. Her condition is known as Charles Bonnet Syndrome and Dr Ffytche estimates that over two million people suffer from this in the UK alone, mostly in silence, due to the fear of being labelled as 'mad'. Geoff also visits Kelly Diederen's lab at Cambridge University, which is investigating the origin of auditory hallucinations - hearing voices. Common in people with schizophrenia, Dr Diederen is instead, scanning the brains of so-called "healthy hallucinators," individuals who otherwise lead perfectly functional lives save for the fact that they hear voices on a daily basis. Could they hold the key to understanding and treating a key symptom of psychosis?(Image: Close up of the face of an anonymous male. Credit: BBC)

The boys are back in the studio bringing you a brand new episode of Eye Cons! Stargardt Disease, Diabetic Retinopathy and Charles Bonnet Syndrome are on the list this time, so sit back and let the boys tell you what they are based on 10 minutes of research.   Contact Us Email: seesawpodcast@gmail.com Twitter: https://twitter.com/SeeSawPod Reddit: https://www.reddit.com/r/seesawpodcast/ Support this podcast at — https://redcircle.com/the-see-saw-podcast/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy