Podcasts about Albinism

Congenital disorder causing skin, eyes, hair/fur, scales, etc. to lack melanin pigmentation

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  • 1EPISODE EVERY OTHER WEEK
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Albinism

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Best podcasts about Albinism

Latest podcast episodes about Albinism

Witch Hunt
Genetics, Not Magic: Protecting Persons with Albinism in Uganda with Peter Ogik

Witch Hunt

Play Episode Listen Later Apr 23, 2025 54:30


In this powerful episode, Josh and Sarah welcome Peter Ogik, Executive Director of Source of the Nile Union of Persons with Albinism in Uganda, who shares his personal story and advocacy work.About our guest: Peter Ogik was born and raised on an island in Lake Victoria, Uganda. As the first person with albinism in his community of about 600 people, Peter faced discrimination from birth but was fortunate to have supportive parents who advocated for him, especially in school settings where he initially struggled due to bullying and visual impairments associated with albinism.Key topics discussed:Personal experiences with discrimination: Peter shares how he was called "a thing" rather than a person, and how children were told not to sit near him because of harmful myths.Educational challenges: Teachers initially placed Peter at the back of the classroom despite his visual impairments until his father intervened, leading to improved academic performance.Dangerous misconceptions: Peter survived three kidnapping attempts by those seeking to harvest his body parts for witchcraft, based on the false belief that they bring wealth.Health challenges: Persons with albinism face high risks of skin cancer, with over 90% dying before age 30 without proper protection and care.Women and girls with albinism: They face additional challenges, including sexual violence based on the myth that intercourse with a woman with albinism can cure HIV/AIDS.Advocacy work: Through his organization, Peter works to:Educate communities and change harmful perceptionsProvide mobile skin clinics and sun protectionTrain teachers to better support students with albinismAdvocate for policy changes like tax exemptions on sunscreenSigns of progress: Peter notes how community attitudes are changing, with more persons with albinism now graduating as doctors, lawyers, engineers, and other professionals.International Albinism Awareness Day: This UN-recognized day (celebrated since 2015) has become a powerful platform for education and policy influence in Uganda.Resources mentioned:Source of the Nile Union of Persons with Albinism (SNUPA)Advantage Africa, a partner organization since 2013This episode highlights how education and advocacy can combat deadly superstitions and improve lives for marginalized groups. Peter's message is one of resilience and hope: "I can't wait to see the tomorrow whereby a person will not define me by my appearance, but will define me by my abilities."Source of the Nile Union of Persons with AlbinismAdvantage AfricaInternational Albinism Awareness Day Facebook PageEnd Witch Hunts U. S. Nonprofit OrganizationSign up for our NewsletterDonate to Witch Hunt Podcast Conference Fund

Witch Hunt
Miss Albinism Africa with Sierra Leone's Daniella Garrick

Witch Hunt

Play Episode Listen Later Apr 2, 2025 35:27


In this powerful episode, we explore the discrimination faced by persons with albinism across Africa through conversations with two remarkable advocates from the Sierra Leone Association of Persons with Albinism (SLAPWA).Join us as we welcome back Jay Kamara, a familiar voice to our listeners, alongside Daniella Garrick, a model, youth leader, and advocate who is representing Sierra Leone in the upcoming Miss Albinism Africa pageant in June 2025.Our guests share how marginalized communities can transform visibility from a source of vulnerability into a platform for challenging misconceptions. Through initiatives like the Miss Albinism Africa pageant, they demonstrate how advocacy can operate effectively for communities that have faced persistent discrimination.This episode offers valuable insights into:The specific support needed by persons with albinism in Sierra LeoneHow pageantry becomes an unexpected vehicle for profound human rights advocacyWays you can participate in these important advocacy effortsHow to support: The Sierra Leone Association of Persons with Albinism is seeking support for Daniella's travel, accommodation, and competition expenses for the Miss Albinism Africa pageant. Learn more at albinismsierraleone.org or visit their Facebook page at facebook.com/slapwa17.Witch Hunt is dedicated to helping you learn about others' experiences and providing meaningful opportunities to take action. Join us for this transformative conversation.email: slapwa.sl@gmail.comSierra Leone Association of Persons with AlbinismSierra Leone Association of Persons with Albinism Facebook PageEnd Witch Hunts U. S. Nonprofit OrganizationPro VictimisMedical Assistance Sierra LeoneSign up for our Newsletter

WomenKind Collective
Accessibility in Healthcare with Anna Tylor, RNIB Chair of Trustees

WomenKind Collective

Play Episode Listen Later Mar 15, 2025 54:47


In this podcast series, Spill The Tea with Womenkind Collective, we'll dive into topics impacting our health and well-being, featuring extraordinary women who are raising their voices for positive change, and our guest today is not only raising her voice she is actually making the change. Anna Tylor is the chair of trustees for the Royal National Institute of Blind people (RNIB), she's a fierce champion for equity in healthcare and an extraordinary advocate for accessibility. She's an organisational and business expert, a trained mediator and author, blogger and fellow podcaster. Born with Albinism, Anna was born partially sighted and experienced sight loss, at which point she was registered as certified severely sight impaired. This classification is also described as blind, though Anna would say she does have some 'useful sight'.She self-educated while raising a child, later working with major organisations to drive inclusivity, from the police force to banking, and even revolutionising access to audiobooks and digital libraries.More recently, Anna was diagnosed with breast cancer, she is now, two and a half years in remission. Her diagnosis exposed shocking gaps in healthcare accessibility for blind and partially sighted people, from vital information being inaccessible through to serious risks to patient safety. Her experience has made her a passionate voice for women advocating for themselves in healthcare and pushing for a more equitable system.Anna is knowledgeable and is a power-house for positivity and change, we loved spilling the tea with her We discuss Google and Apple calendars wiping off not just the history of women but of men as well, we share your comments, there's a new strutting WI (weekly invitation) and a little bit of inspiration to send you off with for the week.It's an episode brimming with chat and all the usual sweary shenanigans! So, go and get the kettle on and settle in for our weekly collective chat while we spill the tea! Anna Tylor:Book: The Blind Truth. Anna Tylor. Audio Book. 2020W: www.theblindtruth.co.ukPodcast: The Blind TruthL: Anna TylorX: @annatylor RNIB Book borrowing service - https://www.rnib.org.uk/living-with-sight-loss/independent-living/reading-and-books/rnib-bookshare/https://www.rnib.org.uk/living-with-sight-loss/independent-living/reading-and-books/rnib-bookshare/If you've enjoyed our Podcast you may like to consider buying us a Ko-Fi at https://ko-fi.com/womenkindcollectivepodcastHere you can find updates, photos and some inclusive content we won't post anywhere else and your donation will help us ensure we continue to bring you great quality of content and sound.You can watch the full unedited interview on our YouTube channel: Womenkind Collective. Hosted on Acast. See acast.com/privacy for more information.

Witch Hunt
Victoria Canning: Criminology Perspectives on Witchcraft Persecution, Violence, and Torture

Witch Hunt

Play Episode Listen Later Mar 12, 2025 51:13


In this episode, Professor Victoria Canning from Lancaster University discusses the overlooked intersection of criminology and witchcraft persecution. Through the lens of "zemiology"—the study of social harm—Canning examines how witchcraft accusations create profound physical, psychological, and cultural damage.Central to our conversation is her concept of "torturous violence," which expands definitions of torture beyond state actions to include sustained community violence with similar traumatic effects. This framework helps explain how witchcraft accusations function as mechanisms of social control, particularly against women.Canning advocates for an "activist criminology" that uses evidence to drive social change and helps practitioners identify and respond to witchcraft-related persecution.Join us for this informative conversation bridging criminology and witchcraft studies to address these overlooked forms of violence.Research and Publications by Victoria CanningWomen for Refugee WomenInternational Conference on Albinism at Lancaster University, September 2025Donate to Witch Hunt Podcast Conference FundMaryland House Joint Resolution 2MD Witch Exoneration Project WebsiteSign the Maryland PetitionSign the Massachusetts Petition

GoodViral
Hunted for Superstition: The Fight to Protect People with Albinism | Peter Ash & Under the Same Sun

GoodViral

Play Episode Listen Later Mar 6, 2025 43:53


Get involved now: https://www.underthesamesun.com/get-involved/Listener and Viewer Discretion AdvisedPeople with Albinism (“Albinos”) are being hunted. Right now, in parts of the world, people with albinism are targeted for their body parts—fueled by superstition and a lucrative black market trade. In some places, election years bring a surge in these brutal attacks, as people believe their body parts bring power and wealth.But this is not just a story of fear and violence—it's also a story of resistance and change.In this episode of The GoodViral Podcast, we sit down with Peter Ash, founder of Under the Same Sun, an organization that has played a key role in massively reducing these horrific hunts. Peter, who has albinism himself, has dedicated his life to dismantling harmful beliefs, educating communities, and empowering people with albinism to live safely and with dignity.Watch, listen, and learn how you can be part of the change.~ Chapters ~00:00 The Dark Reality of Albinism10:13 Education as a Tool for Change20:05 The Ongoing Struggle and Hope for the Future23:23 Empowering Voices: The Journey of Individuals with Albinism30:03 Breaking Stigmas: Public Education and Awareness33:36 Uncovering Trauma: The Hidden Struggles of Albinism38:03 Expanding Horizons: The Africa Albinism Network41:32 A Vision for Change: The Future of Albinism Advocacy~ Under the Same Sun Links ~Instagram: https://www.instagram.com/utss.official/Facebook: https://www.facebook.com/underthesamesunWebsite: https://www.underthesamesun.com~ About Peter Ash ~Peter Ash is a passionate Canadian philanthropist and entrepreneur who also has albinism. As a result of his disability, Christian faith, and business background, Peter is motivated to do whatever he can to provide resources and assistance to people with albinism who have become victims of discrimination in Tanzania, throughout Africa, and worldwide. Peter founded Under The Same Sun (UTSS) after reading about the killings of persons with albinism via the BBC website in 2008. Since then, Peter and UTSS have worked tirelessly to protect, empower, and advocate for people with albinism.~ About GoodViral ~We believe that people can, and want to, do more to help others. We invite you to join the conversation about the small and large ways that we can help people, animals, and the planet.  Subscribe and be part of the movement.When Good Goes Viral, The World Gets Better.~Follow GoodViral ~ Website: ⁠⁠https://goodviral.org/TikTok: ⁠https://www.tiktok.com/@goodviralorg⁠ Instagram: ⁠https://www.instagram.com/goodviralorg/⁠ LinkedIn: ⁠https://kr.linkedin.com/company/goodviral⁠ Facebook: ⁠https://www.facebook.com/GoodViralOrg/⁠ YouTube: ⁠https://www.youtube.com/@goodviralorg/videos⁠--- The Marketing Stuff -- Albinism awareness, Under the Same Sun, Peter Ash, human rights, stop the hunt, end discrimination, albinism matters, inclusion for all, advocacy matters, break the stigma, protect the vulnerable, education for change, hope in action, disability rights, equality for all, superstition kills, justice for albinism, stop violence, human rights matter, empower through education, voices for change, GoodViral Podcast, share the hope, stories that matter, change the narrative, albinism advocacy, support people with albinism, albinism rights, stand with albinism, albinism is not a curse, fight albinism discrimination, protect people with albinism, albinism empowerment, albinism in Africa, raising albinism awareness.#AlbinismAwareness #UnderTheSameSun #PeterAsh #HumanRights #StopTheHunt #EndDiscrimination #AlbinismMatters #InclusionForAll #AdvocacyMatters #BreakTheStigma #ProtectTheVulnerable #EducationForChange #HopeInAction #DisabilityRights #EqualityForAll #SuperstitionKills #JusticeForAlbinism #StopViolence #HumanRightsMatter #EmpowerThroughEducation #VoicesForChange #GoodViralPodcast #ShareTheHope #StoriesThatMatter #ChangeTheNarrative

The JD Dragon Disability Rights Podcast
Life with Albinism in Belize (Interview with Adeena and Berndina Eck)

The JD Dragon Disability Rights Podcast

Play Episode Listen Later Feb 28, 2025 21:42


Adeena and Berndina Eck join us once again to talk about their experiences growing up with Albinism in Belize.Learn more their work with the Inspiration Center via the link below:Official website:⁠https://inspirationcenter.bz/⁠Listen to our original interview regarding their work with “The Inspiration Center” via the links below:Spotify:https://open.spotify.com/episode/7fv7YVD2FQj7PjetyA3dvd?si=W2jdTInvSzebrMlWkpe6HgApple Podcasts:https://podcasts.apple.com/ch/podcast/the-jd-dragon-disability-rights-podcast/id1493666442?i=1000692369772If you would like to reach out feel free to send an email to: atelierfuralle@gmail.com. You can also leave a review of the podcast and follow this show on:Instagram:https://instagram.com/atelierfuralle?igshid=OGQ5ZDc2ODk2ZA%3D%3D&utm_source=qr⁠⁠Facebook:⁠⁠https://www.facebook.com/profile.php?id=61551850785306⁠⁠Feel free to join the "JD Dragon Disability Rights Podcast" Facebook Group:https://www.facebook.com/share/g/12Eit9sBPuR/?mibextid=wwXIfrSnapchat:https://t.snapchat.com/FVWn1jmTDiscord ServerJD DragonX (formerly known as Twitter):@JDDragonPodcast

The JD Dragon Disability Rights Podcast
Belize's Inspiration Center (Interview with Adeena and Berndina Eck)

The JD Dragon Disability Rights Podcast

Play Episode Listen Later Feb 14, 2025 12:18


Adeena and Berndina Eck are two sisters who work for The Inspiration Center (TIC) in Belize City, a nonprofit organization run primarily by volunteer doctors and therapists which supports children with diverse abilities.Adeena was born with Albinism which affects her vision and is a certified Paraprofessional Aid through Autism Belize and is also a member of the Belize Assembly for People with Diverse Abilities (BAPDA) while Berndina is a passionate advocate for people with disabilities who has training from various organizations including the Commonwealth Disabled People's Forum. She also served as the Executive Secretary for the Belize Assembly for Persons with Diverse Abilities (BAPDA).Learn more about the Inspiration Center via the link below:Our previous interview:Spotify:https://open.spotify.com/episode/7fv7YVD2FQj7PjetyA3dvd?si=rv4EeOvDQemda7OppzVFUAApple Podcasts:Official website:https://inspirationcenter.bz/Facebook:https://www.facebook.com/share/1RDvrNCDvg/If you would like to reach out feel free to send an email to: atelierfuralle@gmail.com. You can also leave a review of the podcast and follow this show on:Instagram:https://instagram.com/atelierfuralle?igshid=OGQ5ZDc2ODk2ZA%3D%3D&utm_source=qr⁠⁠Facebook:⁠⁠https://www.facebook.com/profile.php?id=61551850785306⁠⁠Feel free to join the "JD Dragon Disability Rights Podcast" Facebook Group:https://www.facebook.com/share/g/12Eit9sBPuR/?mibextid=wwXIfrSnapchat:https://t.snapchat.com/FVWn1jmTDiscord ServerJD DragonX (formerly known as Twitter):@JDDragonPodcast

Psych Matters
Through the Lens of Adaptation: The Unique Insights of Visually Impaired Psychiatrists

Psych Matters

Play Episode Listen Later Jan 30, 2025 30:04


In this episode, Dr Elizabeth Moore interviews Dr Ettore Guaia and Dr Sadaf Khan about their personal experiences with disabilities, particularly visual impairments, and the importance of disability advocacy within the field of psychiatry. They reflect on their training experiences, highlighting the challenges faced by trainees with disabilities and the need for stronger support systems.Join us as Dr Ettore Guaia and Dr Sadaf Khan provide invaluable lessons on resilience, adaptation, and the importance of understanding different perspectives in psychiatry. Their stories are a testament to the power of determination and the positive impact that diverse experiences can bring to mental health care. The Sunflower Initiative Standford Medicine Alliance for Disability Inclusion and Equity Doctors with Albinism Facebook group Doctors with Disabilities podcast Ettore's interview for International Disability Awareness Day Dr Ettore Guaia is an Italian Australian child and adolescent psychiatrist. He has worked in public and private sectors in Italy, the United Kingdom and since 2012, in Australia. He has worked in paediatric consultation-liaison and as well as in inpatient and outpatient child and adolescent psychiatry, and has a keen interest in neurodevelopmental disorders and intellectual disability. He is the Medical Co-director of Youth Mental Health and Eating Disorders at North Metropolitan Health Service in Western Australia.  Ettore is a person with albinism and a visual impairment. He is a member of the Stanford Medicine Alliance for Disability Inclusion and Equity and Doctors with Albinism, and actively mentors doctors with disabilities.  Dr Sadaf Khan is a newly fellowed consultant psychiatrist currently working in adult acute mental health at Eastern Health in Victoria. She began her psychiatry training in Ireland and is a proud member of both the Royal College of Psychiatrists of Ireland and the UK. In 2024, she completed her fellowship with the Royal Australian and New Zealand College of Psychiatrists (RANZCP). In this conversation, Dr Khan shares her personal experiences navigating the complexities of psychiatric training while living with visual impairment. She candidly discusses the obstacles she faced and the innovative strategies she developed to overcome them. Dr Elizabeth Moore is the current President of the Royal Australian and New Zealand College of Psychiatrists (RANZCP), 2023 - 2025. Topic suggestion:If you have a topic suggestion or would like to participate in a future episode of Psych Matters, we'd love to hear from you.Please contact us by email at: psychmatters.feedback@ranzcp.orgDisclaimer:This podcast is provided to you for information purposes only and to provide a broad public understanding of various mental health topics. The podcast may represent the views of the author and not necessarily the views of The Royal Australian and New Zealand College of Psychiatrists ('RANZCP'). The podcast is not to be relied upon as medical advice, or as a substitute for medical advice, does not establish a doctor-patient relationship and should not be a substitute for individual clinical judgement. By accessing The RANZCP's podcasts you also agree to the full terms and conditions of the RANZCP's Website. Expert mental health information and finding a psychiatrist in Australia or New Zealand is available on the RANZCP's Your Health In Mind Website.

The Skin Real
More Than Skin Deep: How Skin Conditions Shape Lives

The Skin Real

Play Episode Listen Later Dec 16, 2024 38:46


Check out Dr. Mina's top picks for skin care here. Download the free eBook 'Skincare Myths Busted' here. In this episode, Dr. Meena Julapalli shares her journey as a triple board-certified pediatric dermatologist and her transition to a direct care practice. She discusses her humanitarian work, particularly focusing on skin health in resource-limited settings, and highlights the importance of nutrition in recovery. Dr. Julapalli emphasizes the need for education in healthcare, especially regarding conditions like albinism, and the role of hope and joy in the healing process for children with chronic skin conditions. In this conversation, Dr. Meena Julapalli discusses the profound impact of skin conditions on children and the importance of community and empowerment in their healing journey. She emphasizes the transformative power of camp experiences, where children can connect with others facing similar challenges, discover their strengths, and build confidence. Ultimately, she advocates for a holistic approach to healing that goes beyond traditional medicine, focusing on emotional and community support. Key Takeaways: - Nutrition plays a crucial role in skin health and recovery. - Skin conditions affect self-esteem and overall well-being. - Education is vital in empowering patients and families. - Hope is essential for healing and transformation. - Joy can coexist with sadness and is part of the human experience. - Albinism is misunderstood and requires education for better care. - Dr. Julapalli's mission is to give hope to her patients. - Healing encompasses more than just physical health; it includes emotional and social well-being. Severe skin conditions can significantly affect children's quality of life. - Camp experiences provide children with empowerment and a sense of belonging. - Discomfort can lead to personal growth and discovery of strength. - Hope is essential in the healing journey for children with skin conditions. - Community support can transform pain into a source of strength. - Children can redefine their identities beyond their skin conditions. - Healing involves emotional and mental well-being, not just physical treatment. - Empowering children to share their stories fosters resilience. - Connection with nature and community enhances healing. - The journey of healing is ongoing and can lead to personal transformation. Tune into this week's episode, where Dr. Meena Julapalli dives into her mission as a pediatric dermatologist. Learn how kids with severe skin conditions find their inner warriors, the life-changing impact of programs like Camp Discovery, and three practical takeaways every parent needs to know.  Dr. Meena Julapalli is a pediatric dermatologist at her own direct care practice, Bluebird Dermatology, in Houston, Texas as well as the founder of The Joyful Path, whose mission is to empower people to discover, cultivate, and share the joy of their unique gifts. She is the author of two children's books about joy -- "Listen To The Song In My Heart" and "Bluebird, Oh Bluebird, What Makes Your Heart Sing." She is also a TEDx speaker, mindset coach for kids, Reiki master, world explorer (she has been to all 7 continents, all 50 states), avid hiker, meditator, sound healer/instrumentalist, and amateur swing dancer. Website: www.thejoyfulpath.org www.bluebirddermatology.com Social media: www.instagram.com/_thejoyfulpath_ www.instagram.com/bluebirddermatology www.facebook.com/thejoyfulpathllc www.facebook.com/bluebirddermatology www.linkedin.com/in/meena-julapalli Follow Dr. Mina here:-  https://instagram.com/drminaskin https://www.facebook.com/drminaskin https://www.youtube.com/@drminaskin https://www.linkedin.com/in/drminaskin/ For more great skin care tips, subscribe to The Skin Real Podcast or visit www.theskinreal.com Baucom & Mina Derm Surgery, LLC Website- https://www.atlantadermsurgery.com/ Email - scheduling@atlantadermsurgery.com Contact - (404) 844-0496 Instagram - https://www.instagram.com/baucomminamd/ Thanks for listening! The content of this podcast is for entertainment, educational, and informational purposes and does not constitute formal medical advice.

Witch Hunt
Human Rights Day and Albinism: Muluka-Anne Miti-Drummond on Witchcraft Accusations and Ritual Attacks

Witch Hunt

Play Episode Listen Later Dec 10, 2024 43:38


On Human Rights Day, December 10th, marking 76 years since the Universal Declaration of Human Rights, we explore one of humanity's ongoing challenges: how differences continue to be met with fear, persecution, and violence. We welcome special guest Muluka-Anne Miti-Drummond, United Nations Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, for a critical discussion that epitomizes Human Rights Day 2024. Her vital work documents how harmful practices and ritual attacks continue to threaten the lives of persons with albinism in Africa and globally, challenging the fundamental principles the Universal Declaration of Human Rights was created to protect. Our conversation examines how beliefs that lead to harm continue to target persons with albinism, particularly women and children. Through the framework of United Nations Resolution 47/8 on accusations of witchcraft and ritual attacks, we explore how countries worldwide are developing protective measures while respecting cultural contexts. As we mark International Human Rights Day and its vision of dignity for all people regardless of race, color, religion, abilities, or status, this discussion provides both a sobering look at ongoing human rights challenges and hope through education, awareness, and community engagement. Join this crucial exploration of human rights protection, where harmful practices meet National Action Plans, and learn how global communities are working together to ensure safety and dignity for persons with albinism. #HumanRightsDay #PersonsWithAlbinism #UnitedNations #HumanRights #AlbinismRights Resources: United Nations Human Rights Council Resolution 47/8 Study on the situation of the violations and abuses of human rights rooted in harmful practices related to accusations of witchcraft and ritual attacks, as well as stigmatization Papua New Guinea Sorcery and Witchcraft Accusation-Related Violence National Action Plan Pan African Parliament Guidelines for Addressing Accusations of Witchcraft and Ritual Attacks IK Ero On Next Steps For Ending Witch Hunts TINAAWAHP Sierra Leone Association of Persons with Albinism Sierra Leone Association of Persons with Albinism Facebook Page Pro Victimis Medical Assistance Sierra Leone End Witch Hunts Connecticut Witch Trial Exoneration Project Massachusetts Witch-Hunt Justice Project Salem Witch-Hunt Education Project --- Support this podcast: https://podcasters.spotify.com/pod/show/witchhunt/support

Witch Hunt
On Protecting Persons with Albinism with Jay Mohammed Osman Kamara

Witch Hunt

Play Episode Listen Later Nov 20, 2024 50:08


We explore the urgent human rights crisis affecting people with albinism in Africa. Expert guest Jay Mohammed Osman Kamara, Executive Director of the Sierra Leone Association of Persons with Albinism (SLAPWA), discusses protecting persons with albinism and the critical significance of UN Resolution 47/8 on eliminating harmful practices related to witchcraft accusations and ritual attacks. Drawing from his experiences and presentation at the Witchcraft and Human Rights Conference, Kamara reveals how deeply-rooted supernatural beliefs fuel deadly misconceptions, discrimination, and ritual attacks against persons with albinism. The conversation examines SLAPWA's grassroots advocacy, community education initiatives, and protection strategies, while highlighting how the climate crisis creates extreme vulnerabilities for the albinism community. Learn about the critical need for enhanced data collection, stronger government protections, and international cooperation in safeguarding persons with albinism. Content warning: This episode contains discussions of discrimination, violence, and suicide. Crisis support resources - United States: call/text 988 or visit 988lifeline.org; United Kingdom: call 111 or text SHOUT to 85258; Canada: call/text 988; Sierra Leone: dial 019. Links to learn more and become a partner email: slapwa.sl@gmail.com Sierra Leone Association of Persons with Albinism Sierra Leone Association of Persons with Albinism Facebook Page End Witch Hunts U. S. Nonprofit Organization Pro VictimisMedical Assistance Sierra Leone This is Lancaster Podcast: Witchcraft Accusation in the Modern World --- Support this podcast: https://podcasters.spotify.com/pod/show/witchhunt/support

The Birth Hour
945| Unmedicated Hospital Birth with Albinism Diagnosis, Second Hospital Epidural Birth with Redemptive Nursing Experience - Caitlan Mcinally

The Birth Hour

Play Episode Listen Later Nov 14, 2024 46:17


Links: Check out Mommy Care Kit here! Know Your Options Online Childbirth Course - use code 100OFF for $100 off Beyond the First Latch Course (comes free with KYO course) Support The Birth Hour via Patreon!

Red Carpet - Voice of America
Red Carpet — 285| Sierra Leone's Kao Denero talks new music, and more - November 01, 2024

Red Carpet - Voice of America

Play Episode Listen Later Nov 1, 2024 14:59


On this week's Red Carpet, host Jackson Mvunganyi sat down with Sierra Leonean rap artist Kao Denero who is promoting his new 15 song album that pays tribute to several pan African heroes. Plus, South African social media influencers and artists use their platforms to change the narrative about Albinism. This and more entertainment-related updates on today's Red Carpet!

Daybreak Africa  - Voice of America
South African artists with albinism fight stigma - October 17, 2024

Daybreak Africa - Voice of America

Play Episode Listen Later Oct 17, 2024 2:10


In South Africa and elsewhere on the continent, albino people are a target. They face daily discrimination and sometimes even death. But young social media influencers and artists are trying to change the narrative, as Kate Bartlett reports from Johannesburg

Conversations on African Philanthropy Podcast
In Conversation with Hassan Mikazi

Conversations on African Philanthropy Podcast

Play Episode Listen Later Oct 17, 2024 37:16


Send us a textHassan Mikazi is the Regional Chairperson of the Tanzania Albinism Society, which is a vocal and vibrant civil society organisation advocating the rights and interests of people living with Albinism. In his conversation with Prof Moyo, Hassan discusses and reflects on topics which include;- His work in advocating for health inclusion and disability rights- How education can be used to address misconceptions about disabilities- Why global collaboration to support marginalised communities should be encouragedVisit the podcast webpage: https://bit.ly/484AEr3#podcast #philanthropy

Africa Daily
Why are people with albinism still being attacked and mutilated?

Africa Daily

Play Episode Listen Later Sep 24, 2024 22:00


Albinism is an inherited condition that affects the production of melanin. People born with the condition have fair skin, hair and eyes. Superstitions about the body parts of people with albinism have led to violent attacks. In 2008 Tanzania appeared to be the epicentre of these superstitions and attacks. Anyone living with albinism there lived in fear. The BBC's former Tanzania correspondent Vicky Ntetema's reporting on the brutality of the attacks - maiming and beheadings - brought global attention to what was happening there.Over the past 16 years, attacks in Tanzania have reduced significantly but the recent increase in violence against people with albinism in Madagascar suggest the problem has not gone away. In today's episode Africa, Daily's Alan Kasujja speaks to journalist Raissa Ioussef in the capital Antananarivo and to Ikwonponsa Ero, the Managing Director of the African Albinism Network.

Six Degrees of Star Wars
Ep. 26: Yeelen (1987) Shines Bright

Six Degrees of Star Wars

Play Episode Listen Later Aug 4, 2024 44:31


Send us a Text Message.We are here to talk about a gem of Malian cinema, and tripping over our own words as we try to sound smart and also fight against the ingrained cultural biases as products of the West! Results may vary, but sometimes, the journey is what matters.Pluggables:Jasmine: @FaeRiviera on all socialsKyle: @KyleKallgrenBHH on YouTubeCiting our sources: Kyle's original Yeelen video: https://www.youtube.com/watch?v=K0PmgaRmURI"Yeelen": A Political Fable of the "Komo" Blacksmith/Sorcerers: https://www.jstor.org/stable/3820136 Albinism in the Ancient Mediterranean World: https://www.scielo.org.za/scielo.php?script=sci_arttext&pid=S1011-76012021000100001 Dictionary of Gods and Goddesses: https://ia902803.us.archive.org/31/items/pdfy-oq2BfT0sB_7IP7Th/Dictionary%20Of%20Gods%20And%20Goddesses.pdf Bambara culture: https://www.folklore.earth/culture/bambara/Maggie Mae Fish Hero's Journey: https://youtu.be/Q9zR4lWyVN8?si=EkPas6TakFj3JYYx and https://youtu.be/ET4BJIdZKa0?si=7hSMLdITJrCR_hZpKalymba RPG system, created by @danipirraca (Twitter), Kickstarter here: http://kck.st/3w8kyeSSupport the Show.Visit our blog at sixdegreesofstarwars.tumblr.com and ier-6d.tumblr.com6DOSW is a Pro-Union podcast. Please support artists by contributing to the Entertainment Community Fund if you can: https://entertainmentcommunity.org/how-get-help-and-give-help-during-work-stoppageE-Sims for Gaza: https://gazaesims.com/Click to Help: https://arab.org/click-to-help/Anti-Imperialism support for people across the world, organized by Kandakat_alhaqq: https://linktr.ee/kandakat_alhaqqCampus Bail Funds: https://campusbailfunds.com/Theme Music provided by Refractory Period: @RefractoryPeriodTheBand on Instagram, linktr.ee/RefractoryPeriodSam: @LaFemmeFictionale on Youtube and Ko-Fi, @FemmeFictionale on Patreon, Twitter, and Instagram, @FictionaleFemme on TikTok.The views and opinions expressed in this podcast are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.

Rare with Flair
98. rolling out the red carpet for the albinism conference

Rare with Flair

Play Episode Listen Later Jul 23, 2024 84:58


Case + Cass recap their time at the albinism conference in California. They talk about sessions they led and spending time with friends.

The_C.O.W.S.
The C. O. W. S. w/ Ikpanwosa Ero: International Albinism Awareness Day #AlbinismAffairs

The_C.O.W.S.

Play Episode Listen Later Jul 10, 2024


The Context of White Supremacy welcomes Ikpanwosa Ero live from Canada. Born in Nigeria, is classified as a black female with the condition of albinism. This genetic mutation results in melanin deficiency and phenotypical characteristics often associated with people classified as White - pale skin and hair. Ero is an attorney by training and the first United Nations Independent Expert on the enjoyment of human rights by persons with albinism. Gus was literally front row to hear her speak earlier this year at the University of Washington. She detailed the importance of words and even shared an anecdote about her being accused of wielding “white privilege” because of her melanin deficiency. International Albinism Awareness Day was just last month, so we'll ask how she advocated on that day. We'll also inquire about her definition of Racism and if she's noted White people's fascination with albino tigers, albino porcupines, albino skunks and all the mutant critters of the world. Lots of sad illustrations of why Neely Fuller Jr. suggests #NoNameCalling #InternationalAlbinismAwarenessDay #TheCOWS15Years INVEST in The COWS – http://paypal.me/TheCOWS Cash App: https://cash.app/$TheCOWS CALL IN NUMBER: 605.313.5164 CODE: 564943#

Kelly and Company
We recap Halifax's International Albinism Awareness Day celebrations

Kelly and Company

Play Episode Listen Later Jul 8, 2024 15:36


AMI Podcast Coordinator Ryan Delehanty recounts this year's epic International Albinism Awareness Day celebration in Halifax, featuring live AMI broadcasts, a live band, and global albinism activists. International Albinism Awareness Day special

Kelly and Company
Full Episode - 1821

Kelly and Company

Play Episode Listen Later Jul 8, 2024 104:31


Michael Babcock shares his experience unboxing the Zoom H4E, a portable field recorder designed with blind and low vision content creators in mind. AMI Podcast Coordinator Ryan Delehanty recounts this year's epic International Albinism Awareness Day celebration in Halifax, featuring live AMI broadcasts, a live band, and global albinism activists. Montreal Community Reporter Mathieu Rochette highlights the Monique Truquet Prize, an international news competition for Francophone people with visual disabilities, offering winners a chance to have their work published in accessible formats. Have you got a soft spot for dogs with jobs? Reporter Devon Wilkins brings us the latest  for guide and service dog handlers, including the celebration of the 25th Anniversary of the Guide Dog Users of Canada. On Know Your Rights, Danielle McLaughlin examines the recently passed Louisiana legislation on surgical castration for sex offenders, and discusses its potential human rights violations.

Low Vision Moments
International Albinism Awareness Day Special

Low Vision Moments

Play Episode Listen Later Jun 28, 2024 121:09


In this very special extended live episode, we celebrate the 10th International Albinism Awareness Day, established by the United Nations.Dave Brown, of AMI-tv's NOW with Dave Brown, comes all the way to Halifax to co-host.Jennie and Dave connect with prominent guests from the albinism community, joining from all over the world.They compare experiences, discuss important advocacy work, and shine a light - but not too bright - on guests' talents.Prepare for some laughs, poignant moments, and even some music with Outtacontroller, the band behind our theme song performing live in studio.HighlightsOuttacontroller – Low Vision Moments Theme Song (00:00)International Albinism Awareness Day Introduction (00:40)Cassandra Mendez & Casey Greer of “Rare with Flair” (05:59)What is Albinism? (12:45)Hermansky-Pudlak Syndrome (HPS) (13:31)Kristina Venning-Rose – Co-Chair, Albinism Fellowship UK (16:50)Albinism Fellowship UK (20:38)The Importance of Community (23:27)Getting Involved – Group Discussion (25:24)Outtacontroller - “Too Soon” (36:04)I.K. Ero - Director, Human Rights Advocacy at Under the Same Sun (39:24)Under the Same Sun (41:47)WHO Essential Medicines List Sunscreen Petition (43:41)Xueli Abbing - Founder of Open Eyes Foundation, UN Goodwill Ambassador & International Model (47:43)Open Eyes Foundation (50:41)Power of Representation (51:59)Institutional Change – Group Discussion (55:21)Outtacontroller - “Cheap Leather Jacket” (1:06:35)Jennifer Renee - Inclusive Beauty Influencer, Performing & Visual Artist (1:08:40)Danielle Moulds - Accessibility Consultant, Content Creator, Gamer & Streamer (1:19:37)Music Video - “Pure” by RobenX (1:26:51)RobenX – Musician, Advocate & 2024 UN Champion for International Albinism Awareness Day (1:32:38)Albinism in Arts & Entertainment – Group Discussion (1:40:10)Dave Brown - The Importance of Platform (1:53:51)Jennie Bovard - Closing Remarks (1:55:40)Outtacontroller – “Come Alive” (1:58:16)Set and Hosts Description:Jennie and Dave appear on a set, both seated in oversized red armchairs on an area rug. A TV monitor is on the left and displays guests during interviews & group discussions. The backdrop is a screen with various slow-moving drone videos of Nova Scotia landscapes. Jennie wears an oversized floral pattern blazer, jeans, and sneakers. Dave wears a dark blue blazer, jeans, and sneakers.Co-Host Info:Dave Brown - Host of NOW with Dave Brown on AMI tv, co-host. Find NOW with Dave Brown on YouTubeGuest Info:Cassandra Mendez - Rare With Flair Podcast, Accessibility Specialist, from Ohio, USA.Find Cassandra Mendez on LinkedInCasey Greer - Rare With Flair Podcast, NOAH, Descriptive Video works, from Tennessee, USA.NOAH (National Organization for Albinism and Hypopigmentation)  WebsiteRare with Flair Podcast - Website / InstagramKristina Venning-Rose – Co-Chair Albinism Fellowship UK, from London, UK.Albinism Fellowship UK WebsiteIkponwosa (I.K) Ero - Director, Human Rights Advocacy at Under the Same Sun, Former United Nations Independent Expert to the Human Rights Council, British Columbia.Under the Same Sun WebsiteFind I.K. Ero on LinkedInSign the WHO Petition to re-add sunscreen to list of Essential MedicinesXueli Abbing -  International model, UN Goodwill ambassador, founder of Open Eyes Foundation, from Netherlands.Find Xueli Abbing on LinkedInOpen Eyes Foundation WebsiteBBC Profile of XueliFollow Xueli on InstagramRobin Spinks - Head of Inclusive Design at RNIB, dad, and adventurer.Find Robin Spinks on LinkedInFollow Robin on InstagramJennifer Renee - Inclusive beauty influencer, performing and visual artist, former jump rope coach, from New York, USA.Follow Jennifer Renee on Instagram, YouTube & TikTokDanielle Moulds - accessibility consultant, content creator, prolific gamer & streamer, from Mississippi, USA.Albinism Up Close Website Follow Danielle on Instagram, YouTube  & LinkedIn RobenX - UN 2024 Champion for International Albinism Awareness Day, Musician and Advocate from Tennessee, USA, RobenX Website Find RobenX on YouTubeOuttacontroller - Band behind the podcast theme song, playing live in this episode, based in Halifax, Nova Scotia.Find Music from Outtacontroller on BandcampFollow Outtacontroller on Instagram   Host description: Jennie is a woman with shoulder-length white-blonde hair, strong glasses with purple rims. She has very pale skin and wears light makeup. Her facial expressions are animated and she often speaks with her hands. She wears a small pink stud nose jewellery. The background includes two large bookcases, full of a variety of books, DVDs, toys, and nicknacks. About Low Vision Moments:Part story time, part comedy, part awareness driven, Jennie Bovard presents funny experiences that happen when you are blind or partially sighted. Jennie Bovard is a running, beer-drinking, thirtysomething with albinism. She loves trying all the things, making people laugh, and volunteering to create accessible sport and recreation opportunities in her community. Jennie, who has lived with partial sight all her life, has a diploma in film and TV production. Jennie lives in Halifax. About AMIAMI is a not-for-profit media company that entertains, informs and empowers Canadians who are blind or partially sighted. Operating three broadcast services, AMI-tv and AMI-audio in English and AMI-télé in French, AMI's vision is to establish and support a voice for Canadians with disabilities, representing their interests, concerns and values through inclusion, representation, accessible media, reflection, representation and portrayal. Learn more at AMI.caConnect on Twitter @AccessibleMediaOn Instagram @accessiblemediaincOn Facebook at @AccessibleMediaIncEmail feedback@ami.ca

Highlights from Moncrieff
World Albinism Awareness Day - What is Albinism?

Highlights from Moncrieff

Play Episode Listen Later Jun 13, 2024 14:35


The 13th of June is World Albinism Awareness Day, a condition that gives a person very light skin, hair and eyes - and can affect their quality vision. Jonathan DeBurca Butler went out to find people with the condition to learn more, and joins Seán to discuss.Image: Albinism Fellowship

The Praiseworld Podcast
Catching Up with Gospel Singer Ccioma, Peter Obi's Reaction to Tinubu's Fall at Democracy Event, Albinism Awareness Day

The Praiseworld Podcast

Play Episode Listen Later Jun 13, 2024 54:13


Quote of The Day: "Get over the fear of “nobody's gonna rock with me” and CREATE from your heart.” ~ EazyBobWizzy Interesting Chat with Ccioma about life, music, and her forthcoming live album recording concert “One with God”,  Hosts: TOLA Omoniyi, Kanyinsola Omojola

RNIB Connect
S2 Ep572: It's International Albinism Awareness Day!

RNIB Connect

Play Episode Listen Later Jun 13, 2024 9:34


Did you know that 13th of June marks International Albinism Awareness Day? Paulina Kuchorew spoke with co-chairs of the Albinism Fellowship, Eshita Unadkat and Kristina Venning – Rose, about the importance of this awareness day in challenging negative stereotypes and myths around living with albinism. For support and more information about the work of Albinism Fellowship visit: About the Albinism Fellowship | Albinism Fellowship Image shows RNIB Connect Radio logo.

Live from Studio 5 on AMI-audio
Albinism Awareness with RobenX

Live from Studio 5 on AMI-audio

Play Episode Listen Later Jun 13, 2024 12:27


Rapper RobenX is dedicated to raising awareness on Albinism and anti-bullying. He reflects on his journey as an artist and explores the importance of advocacy year-round. From the June 13, 2024, episode.

Africalink | Deutsche Welle
How society can end stigma associated with albinism

Africalink | Deutsche Welle

Play Episode Listen Later Jun 13, 2024 26:43


People born with albinism face challenges like stigma in parts of Africa. On International Albinism Awareness Day, DW speaks to personalities born with Albinism: Tanzania's Permanent Representative to the United Nations, Abdallah Saleh Possi, William Maduhu Kulwa, a Tanzanian activist and lawyer working on albinism rights and Thando Hopa, a prosecutor-turned-model.

This May Get Hairy
All About Albinism with Vicky Jackson

This May Get Hairy

Play Episode Listen Later May 28, 2024 46:47


Model Vicky Jackson shares her personal journey with Albinism, a condition that effects the pigment in skin, hair and eyes.Vicky opens up about the challenges she faced growing up, her experiences working in the fashion industry and the misconceptions surrounding her condition. Together, they explore the double-edged sword of representation, the power of resilience and strength she found in embracing her own incredible unique look.Follow Vicky on Instagram: _vickyjacksonGet in touch by email: thismaygethairy@gmail.comFollow us on Instagram: @amberjeanrowan @amberjeanshop Hosted on Acast. See acast.com/privacy for more information.

acast albinism vicky jackson
Underdawg Talk
Vintage Vibes W/ Joi-Lyn Thornton #124

Underdawg Talk

Play Episode Listen Later May 10, 2024 95:21


Welcome to the latest episode of Underdawg Talk with your host, Eric Jones Jr., featuring the vibrant and talented Joi-lyn Thornton. In this episode, Joi-lyn shares her journey as a fashion enthusiast and owner of Enjoy Vintage, a unique business specializing in repurposed vintage clothing. Join Eric and Joi-lyn as they discuss their favorite celebrity fashion icons, and music preferences, and even delve into a recent diss track by Kendrick Lamar. Discover the inspiration behind Joi-lyn's powerful message that "the price of your clothes does not determine your worth" and gain insights into her personal style evolution from tomboy to fashionista. Tune in to hear about their favorite road trip music artists, reflections on Atlanta's music scene, and the impact of music on fashion trends. From Aaliyah to Andre 3000, Rihanna to Erykah Badu, this episode is a delightful blend of fashion, music, and cultural influences. Don't miss out on this engaging and insightful conversation between Eric and Joi-lyn as they explore the intersection of music and fashion in a fun and dynamic way. So grab your headphones and get ready to dive into the world of style and sound with Underdawg Talk! Time Stamps: [00:01:41] Overcoming spina bifida diagnosis. [00:04:04] Birthday weekend plans and tournaments. [00:10:41] Upcycling fashion design journey. [00:14:24] The art of fashion styling. [00:18:44] Vintage clothing trends. [00:21:23] Fashion trends from the past. [00:26:54] Choices and their lasting effects. [00:29:15] Discovering the self through fashion. [00:32:50] Kendrick's epic diss track. [00:37:58] Atlanta road trip music artists. [00:42:47] Unique Fashion Icons. [00:48:48] Fashion challenges for tall women. [00:50:26] Learning about women's sizes. [00:56:06] Girly phase confusion. [00:57:40] Advice for aspiring entrepreneurs. [01:02:07] Pursuit of happiness and entrepreneurship. [01:06:27] Common sense in entrepreneurship. [01:09:20] Good character and legacy. [01:14:11] Parenting and discipline. [01:17:29] Connecting with kids through teaching. [01:21:54] Fashion tips for self-expression. [01:24:54] Be bold, wear red. [01:28:29] Embracing adversity with faith. [01:34:13] Albinism in fashion. [00:02:17] Keep being great. Joi-Lyn on IG : https://www.instagram.com/enjoivintage89/ #entrepreneur #smallbusiness #podcast #howto #underdog #underdawgtalk

Aftersight
Unsightly Opinions

Aftersight

Play Episode Listen Later May 9, 2024 27:00


Summary In this conversation, Tamara, also known as Unsightly Opinions, discusses her fashion sense, social media presence, vision loss due to albinism, education, and advocacy work. She shares her daily routine and the challenges of managing social media and editing videos. Tamara's goal is to show possibility, demonstrate capability, and remove barriers for individuals with disabilities. The conversation concludes with a discussion about Mother's Day and the importance of being kind to oneself and others. Takeaways Tamara, also known as Unsightly Opinions, is a vlogger, musician, and advocate for individuals with disabilities. She has a passion for fashion and shares her unique style on social media. Tamara has albinism, a genetic condition that results in a lack of pigment and affects her vision. She had a supportive education experience and advocates for equity and accessibility in education. Tamara's daily routine is busy, as she balances her work as a vlogger and musician with other commitments. Managing social media and editing videos is time-consuming but rewarding for Tamara. Her goal is to show possibility, demonstrate capability, and remove barriers for individuals with disabilities. Mother's Day is an important time to appreciate and honor the special women in our lives. Chapters 00:00 Introduction and Yoga Class 03:00 Tamara's Fashion Sense 07:58 Tamara's Social Media Presence 13:03 Tamara's Vision Loss and Albinism 16:01 Tamara's Education and Advocacy 22:58 Managing Social Media and Editing Videos 26:58 Tamara's Goals and Impact 29:00 Mother's Day and Conclusion Thank you for listening to this episode of the blind chick. If you have any questions for PanzaPenn and Moses, please feel free to give us a call at 720-712-8856 or you can email us at feedback at at firstsight.org. Have a great week.

Don't Look Now
272 - The Moon Eyed People

Don't Look Now

Play Episode Listen Later Apr 30, 2024 39:05


There are legends among the Cherokee and other Native American tribes of a people that existed in North America well before the arrival of Columbus  that had very light skin and large "moon eyes".  Theories have abounded about who or what these Moon Eyed people were, from Albinos, to decedents of pre-Columbian  Welsh explorers, to Aliens (of course).  Take a listen and see what you think is behind the stories of the Moon Eyed People

Low Vision Moments
Run for your Life with Daryl Lang

Low Vision Moments

Play Episode Listen Later Apr 26, 2024 43:37


Guest Daryl Lang is a runner of marathons, a recently-published author, and so much more. Experience the highs and lows of racing with and without guides in this episode, which we promise is about so much more than running. We describe the worst ball pit ever, a low vision moment within a low vision moment, and when it's appropriate to tell us to go a little deeper into the woods.Highlights:Show Open (00:00)Introducing Daryl Lang: Author, Runner, Edmontonian (00:45)About the book “Run for Your Life” (02:24)“It's Not Just About Running” (04:58)Run Guides & Race Planning (06:45)“Losing Your Gaggle” or “The Half-Marathon Incident” (11:15)The Epic Road Trip of Awesome (18:49)“But I'm Canadian, we don't litter!” (20:30)Awkward Experiences with Running Guides (24:05)Porta Potty Training Runs (30:32)The Gift of Running (36:31)Show Close (42:14) DESCRIPTIVE TRANSCRIPTGuest description:Daryl has long brown hair and wears a bright blue v-neck shirt. She's sitting in a naturally lit home office space. EPISODE NOTESGuest Bio:Daryl Lang hails from Edmonton, Alberta. She's a marathon runner, a rescuer of animals, a published author, and a legal professional. Links:Daryl contributed to the book Run For Your Life: Lessons Learned From Going the Distance. Find the book on Amazon:Request the book at no cost in your preferred format from CELA Guest Daryl Lang's blog: BlindBeader.ca Host description: Jennie is a woman with shoulder-length white-blonde hair, strong glasses with purple rims. She has very pale skin and wears light makeup. Her facial expressions are animated and she often speaks with her hands. She wears a small pink stud nose jewellery. The background includes two large bookcases, full of a variety of books, DVDs, toys, and nicknacks. About Low Vision Moments:Part story time, part comedy, part awareness driven, Jennie Bovard presents funny experiences that happen when you are blind or partially sighted. Jennie Bovard is a running, beer-drinking, thirtysomething with albinism. She loves trying all the things, making people laugh, and volunteering to create accessible sport and recreation opportunities in her community. Jennie, who has lived with partial sight all her life, has a diploma in film and TV production. Jennie lives in Halifax. About AMIAMI is a not-for-profit media company that entertains, informs and empowers Canadians who are blind or partially sighted. Operating three broadcast services, AMI-tv and AMI-audio in English and AMI-télé in French, AMI's vision is to establish and support a voice for Canadians with disabilities, representing their interests, concerns and values through inclusion, representation, accessible media, reflection, representation and portrayal. Learn more at AMI.caConnect on Twitter @AccessibleMediaOn Instagram @accessiblemediaincOn Facebook at @AccessibleMediaIncEmail feedback@ami.ca

Heavy Breather
[Patreon unocked] Cosmetic Albinism

Heavy Breather

Play Episode Listen Later Apr 8, 2024 31:41


For more episodes, subscribe to our ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.

Low Vision Moments
Mr. Magoo on a Flag with Dan Barra-Berger

Low Vision Moments

Play Episode Listen Later Mar 29, 2024 36:29


Dan Barra-Berger is a writer for The Squeaky Wheel: Canada, a new satire series coming soon to AMI. He's also a stand-up comedian and actor. Jennie and Dan own some blind stereotypes in this episode, but they are against the Mr. Magoo-ing of society. Like proper Canadians, they discuss the weather, along with being albino at the beach, and they critique a few favourite series as seen through their different eye conditions.Highlights:Disability Icon: Mr. Magoo – Opening Clip (00:00)Show Open (00:18)Introducing Dan Berra-Berger, Comedian, Actor & Writer (00:43)Squeaky Wheel: Canada - Coming Soon to AMI-tv (01:33)Owning Your Stereotypes (03:42)Magoo Tattoo (05:11)“How Do You Know When It's Raining?” / No Stupid Questions (06:35)No Beach, Please! (9:42)Stickler Syndrome – Connective Tissue Disorder (13:17)Ping Pong Bars & the Power of Saying “No” (15:31)The Joy of Dimly Lit TV Shows (18:17)Too Dark to See “See” on Apple TV? (22:33)Identifying Voices & Foot Falls (27:07)The Squeaky Wheel Experience (32:42)Find More from Dan Barra-Berger (34:49)Show Close (35:09)Guest Bio: Dan Barra-Berger is an actor, stand-up comedian, and storyteller from Ontario. He is a writer for the forthcoming AMI series The Squeaky Wheel: Canada. Dan has appeared on CBC's Next Up, AMI's Breaking Character, and SEE on Apple TV.Guest description: Dan has short and curly brown hair, strong glasses, and facial hair. He wears AirPods and a brown checkered button-up over a black t-shirt. He sits in front of a busy bookcase, blurred in the background. Host description:Jennie is a woman with shoulder-length white-blonde hair, strong glasses with purple rims. She has very pale skin and wears light makeup. Her facial expressions are animated and she often speaks with her hands. She wears a small pink stud nose jewellery. The background includes two large bookcases, full of a variety of books, DVDs, toys, and nicknacks.Links:Dan Barra-Berger's Official Website Dan on YouTubeThe Squeaky Wheel: Canada AMI's Breaking Character CBC Next Up SEE on Apple TV  About Low Vision Moments:Part story time, part comedy, part awareness driven, Jennie Bovard presents funny experiences that happen when you are blind or partially sighted. Jennie Bovard is a running, beer-drinking, thirtysomething with albinism. She loves trying all the things, making people laugh, and volunteering to create accessible sport and recreation opportunities in her community. Jennie, who has lived with partial sight all her life, has a diploma in film and TV production. Jennie lives in Halifax. About AMIAMI is a not-for-profit media company that entertains, informs and empowers Canadians who are blind or partially sighted. Operating three broadcast services, AMI-tv and AMI-audio in English and AMI-télé in French, AMI's vision is to establish and support a voice for Canadians with disabilities, representing their interests, concerns and values through inclusion, representation, accessible media, reflection, representation and portrayal. Learn more at AMI.caConnect on Twitter @AccessibleMediaOn Instagram @accessiblemediaincOn Facebook at @AccessibleMediaIncEmail feedback@ami.ca

The Peaceful Parenting Podcast
146: When Your Child Is Different with Sonali Vongchusiri

The Peaceful Parenting Podcast

Play Episode Listen Later Mar 27, 2024 47:52


In this episode of the Peaceful Parenting Podcast, Sonali Vongchusiri of Forward Together Parenting shares her story of both growing up and being a parent as a legally blind person with Albinism. Sonali and I discuss navigating differences and finding true belonging. We talk about: 6:00 Why Sonali didn't find out she had Albinism until age 12 9:00 Sonali sharing her story of how she found out 13:00 Sonali's struggles to accept herself and her disability 17:40 Sonali realizing she couldn't parent the way other parents could 18:45 Sonali finding her own unique way to parent 26:30 Fitting in vs. belonging 34:43 The problem with pretending there is no difference Download the episode transcipt HERE Resources mentioned in this episode: https://www.forwardtogetherparenting.com/ https://www.facebook.com/groups/raisingyourstrongwilledchild   Connect with Sarah Rosensweet   Instagram: https://www.instagram.com/sarahrosensweet/  Facebook Group: https://www.facebook.com/groups/peacefulparentingfreegroup Website: https://www.sarahrosensweet.com  Join us on Patreon: www.patreon.com/peacefulparenting  Newsletter: www.sarahrosensweet.com/newsletter Book a short consult or coaching session call: https://book-with-sarah-rosensweet.as.me/schedule.php     

Griddy Knows Best
S6 Ep170: Sexual Healing (w/ Toni-Marie)

Griddy Knows Best

Play Episode Listen Later Mar 26, 2024 76:40


Toni & I discuss her experience with Albinism, her work as a therapist - & we're joined by a special guest

The Tales We Tell
Ep. 204: Moon-Eyed People

The Tales We Tell

Play Episode Listen Later Mar 13, 2024 91:45


Deep in the heart of Appalachia, there's a legend of a pale race of cave-dwelling people, who only come out at night, and who may or may not have been driven to extinction. This week, Hannah tells Katy about the Moon-Eyed People of Appalachia (thank you Amanda, for the suggestion!). The girls talk problematic white history, blind Pelicans, gay whales, genetics, Welsh pronunciations, and whether or not the Moon-Eyed People actually existed (and whether they still exist today!) It's a great follow up to the Giant Skeletons episode (ep. 199) and the whacky history white settlers tried to impose to justify colonization; plus a few fun facts about Indigenous Americans and their very long, rich history. Pour those drinks, grab a snack, gather your kids (it's a kid-friendly one), and join us for this tale of Local Lore! Sources:https://www.penn.museum/sites/expedition/moon-children-of-san-blas-islands/https://web.archive.org/web/20130127191203/http://news.nationalgeographic.com/news/2013/01/130125-albino- albinism-tanzania-witch-doctors/https://en.wikipedia.org/wiki/Albinism_in_humanshttps://www.cambridge.org/core/services/aop-cambridge- core/content/view/BB0EC319CD247F5FEA8B4A477D9C9052/S0025727300025357a.pdf/the-legend-of-a-white-native- race.pdfhttps://allthatsinteresting.com/moon-eyed-peoplehttps://northcarolinaghosts.com/mountains/moon-eyed-people/scary-truth/ https://northcarolinaghosts.com/mountains/moon-eyed-people/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1932351/pdf/ajhg00558-0085.pdf https://www.cnn.com/2019/07/20/uk/welsh-americas-history-intl-hnk/index.html https://www.thesylvaherald.com/news/article_63be7a46-193a-11eb-bcb1-9b6452791b80.html https://www.ancient-origins.net/myths-legends-americas/moon-eyed-people-0016334 Support the showFollow us @thetaleswetellpodcast on Facebook and Instagram, or thetaleswetellpodcast.comSupport us on Patreon: https://www.patreon.com/join/thetaleswetellpodcast?Click here for merch!

Legally Blonde & Blind
31. Albinism is not an Accessory

Legally Blonde & Blind

Play Episode Listen Later Mar 3, 2024 23:52


We've all heard the phrase “albinism is beautiful,” and over the last decade, albino models, influencers, and advocates have taken the world by storm. But albinism representation—especially in the fashion and beauty industry—is far from perfect. In the thirtieth episode of Legally Blonde & Blind, I discuss society's evolving attitudes towards beauty and how we can more meaningfully include, uplift, and celebrate those with albinism. Tune in to learn how for me, albinism is far more than pretty white hair..it's a community, source of pride, and part of who I am. Connect with Legally Blonde & Blind! Website  - ⁠https://www.legallyblondeblind.com/⁠  Instagram - ⁠https://www.instagram.com/legallybb_/?hl=en⁠  Facebook - ⁠https://www.facebook.com/legallybb/⁠  LinkedIn - ⁠https://www.linkedin.com/company/legally-blonde-blind/ Resources & Transcript - https://www.legallyblondeblind.com/post/31-albinism-is-not-an-accessory

Low Vision Moments
Small-Town Bougie & Not Blind Enough

Low Vision Moments

Play Episode Listen Later Feb 23, 2024 42:44


Just because it can be done, doesn't mean it isn't a pain in the ass. Small-town bougie guest Brenda Luke and Jennie reveal their struggles with nails, lashes, and feeling bad about not being blind enough. They try to unravel when exactly leggings became see-through and wonder what even is flirting?Highlights:"Are you wearing a yellow thong right now?" - Opening Clip (00:00)Introducing Brenda Luke (00:16)Horticulture, Bunnies & Alejandro the Betta (02:15)Painted Nails Aftermath (3:11) Foot-Phobic on Feet Finder (06:58)Where's My Free Pedicure?!? (7:57)Not Blind Enough (11:15)See-Through Yoga Pants & the Yellow Thong (18:08)The Opacity of Tights (21:39)Mismatched Eyelashes (23:19)The Brow Brush Incident (28:21)Oblivious to Flirting (32:03)The Creepy Carnie (35:38)Show Close (39:09) Guest bio:Brenda Luke works in horticulture, while rocking a full face of makeup. She's obsessed with her fur babies and is down for a good glass of purple gin. Brenda is an indigenous woman (yaqan nukiy of the Ktunaxa nation).Guest Description:Brenda is an indigenous woman (yaqan nukiy of the Ktunaxa nation) with killer cheekbones and long fake lashes. Her left eyebrow and top middle lip are pierced. Brenda is an indigenous woman (yaqan nukiy of the Ktunaxa nation).Follow Brenda Online:Instagram: @ekuladnerbTikTok: 23bluke   About Low Vision Moments:Part story time, part comedy, part awareness driven, Jennie Bovard presents funny experiences that happen when you are blind or partially sighted. Jennie Bovard is a running, beer-drinking, thirtysomething with albinism. She loves trying all the things, making people laugh, and volunteering to create accessible sport and recreation opportunities in her community. Jennie, who has lived with partial sight all her life, has a diploma in film and TV production. Jennie lives in Halifax. About AMIAMI is a not-for-profit media company that entertains, informs and empowers Canadians who are blind or partially sighted. Operating three broadcast services, AMI-tv and AMI-audio in English and AMI-télé in French, AMI's vision is to establish and support a voice for Canadians with disabilities, representing their interests, concerns and values through inclusion, representation, accessible media, reflection, representation and portrayal. Learn more at AMI.caConnect on Twitter @AccessibleMediaOn Instagram @accessiblemediaincOn Facebook at @AccessibleMediaIncEmail feedback@ami.ca

The Medbullets Step 2 & 3 Podcast
Dermatology | Albinism

The Medbullets Step 2 & 3 Podcast

Play Episode Listen Later Feb 11, 2024 8:04


In this episode, we review the high-yield topic of ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Albinism⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠from the Dermatology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets

The_C.O.W.S.
The C. O. W. S. Ikponwosa Ero Explains Albinism at The University of Washington #AlbinismAffairs #WhiteNigger

The_C.O.W.S.

Play Episode Listen Later Feb 8, 2024


Ikponwosa Ero visits the University of Washington to discuss: “Human Rights in Practice: An overview of the journey to protect people with albinism in Africa and globally” Ero was born in Nigeria and migrated to Canada in her teens. She's classified as a non-white female with albinism - a genetic defect which manifests as a person lacking melanin, skin pigmentation. "Ms. Ero is a lawyer by training and the first United Nations Independent Expert on the enjoyment of human rights by persons with albinism. Her experiences and impact span across multiple continents over more than a decade of policy research and advocacy, having worked with several government agencies and organizations to further the rights of persons with albinism, and being a leader in more than twenty international human rights resolutions at both the United Nations and the African Union." Dr. Frances Cress Welsing often discuss the significance of albinism in relation to her theory of White Genetic Annihilation. She theorized that individuals classified as White are also melanin deficient, and their lack of pigmentation partly motivates their mistreatment of dark skinned people - especially those classified as black. Gus and C.O.W.S. listeners were able to ask a number of questions. Ms. Ero explained the "intrigue" or thrill associated with publicizing how dark skinned Africans abuse and sometimes butcher African people with albinism. We also discussed an alleged "white privilege" that she receives as a result of looking phenotypically similar to people classified as White. Ms. Ero acknowledged their may be some true to this statement. There was a substantial informal discussion following the main event, and Gus was able to ask even more questions. During this time, Ms. Ero explained that when she moved to Canada in her teens, an "Indian" person called her a "White nigger." For Gus, this further solidified that she could not be accepted as White, and reminds us that #BlackGetBack Even for the pale black people with albinism. #AlbinismAffairs #TheCOWS15Years INVEST in The COWS – http://paypal.me/TheCOWS Cash App: https://cash.app/$TheCOWS CALL IN NUMBER: 605.313.5164 CODE: 564943#

Low Vision Moments
Top 5 Low Vision Moments of 2023

Low Vision Moments

Play Episode Listen Later Jan 26, 2024 31:04


Let's reflect on 2023, a stellar year of podcast guests, and the most hilarious and thought-provoking stories. From the worst places to leave food, to airport poop jokes, and celebrating the legendary Darryl Lenox, Jennie highlights the Top 5 Low Vision Moments of the year. Highlights:Blind Pele – Opening Clip (00:00)Top 5 Low Vision Moments of 2023 Introduction (00:17)Honourable Mention – Ben Akuoko (01:33)#5 – Sitting in Crab Curry with Ramya Amuthan (02:15)#4 – Ostomy Bag Check with Rare with Flair (06:48)#3 – Blind Swag with MDB (11:52)#2 – Snubbing Grandma with Dave Brown (17:16)#1 – Balloon at the Border with Darryl Lenox (21:01)Bonus – Locked Out in 2024 (27:50)Show Close (29:20)Links:Ben Akuoko co-hosts CNIB's The Lens: Living Diverse PodcastRamya Amutham co-hosts Kelly and Ramya on AMI TV and the AMI Audiobook Review podcastCasey Greer & Cassandra Mendez host the Rare with Flair podcastMDB (AKA Mike Dow) is a rapper based in Moncton, NB, find him on Facebook and YouTube.Dave Brown hosts Now with Dave Brown on AMI TV, find content on YouTube and podcast platforms. Darryl Lenox is a comedy legend, visit www.DarrylLenox.comTheme song by Outtacontroller - BandCamp; @Outtacontroller on Instagram

The William Montgomery Show
Jack Horner | The William Montgomery Show #113

The William Montgomery Show

Play Episode Listen Later Jan 25, 2024 67:55


William Montgomery and Casey Rocket, joined by fellow comedian Jack Horner, are in studio, and even though this was an emergency episode, the boys come together to bring you a real Rumspringa of a show! Find out first hand on what it's like living with a compromised immune system. Do you have a compromised immune system? Tell us in the comments how you delt with the lock downs? Plus William and Casey open up about their early days of touring with their band Albinism, bringing the sounds of The Big Island to the people of The Big Alps. The Boys recount the time they showed up The Dave Matthews Band at a huge live event. The look of fear on Dave Matthews, as the boys took the stage, was a once in a lifetime spectacular, you wont want to miss. But that's not all! The WMS answers the major questions, like, has Big Foot finally taken his place as the Apex Predator, now that we learned that they have Predator like cloaking technology? How did ancient civilizations all have depictions of dragons when Big Government tells us they never existed? and are you allowed self pleasure when you're married? We give you the answers you have been search for PLUS we teach your the McCallister kissing method. Here's a hint, there's more chest involved than you might think! Find out all the secrets on this weeks episode of The William Montgomery Show!  Support the show and get Factor for 50% off athttps://www.factormeals.com/WMS50 and use code WMS50  Watch new episodes of The William Montgomery Show on YouTube every Wednesday at 8:30 PM Central: https://www.youtube.com/channel/UCQJ2SBnAMI8SSm5qpLXBRiw Follow William onInstagram: @william.f.montgomery1 https://williamfmontgomery.com Merch: https://william-montgomery-town.creator-spring.com For More William Montgomery, check out ‘Kill Tony' live every Monday at The Comedy Mother Ship in Austin TX and on YouTube: https://www.youtube.com/c/KillTony Find more Casey Rocket on Instagram @caseyrocket and at https://www.patreon.com/caseyrocket Get your own Grimace shirthttps://rawpaw.ink/products/congress-is-furious-by-casey-rocket  Original cover art illustration by Ryan J. Ebelt: https://ryanjebelt.com Recorded in Austin Texas at Record ATX. Send William an email at: TheWilliamMontgomeryShow@gmail.com Leave William a voicemail at: (737) 471-1098 Send your letters & packages to:P.O. Box 40316 Austin, TX 78704 The William Montgomery Show is produced by William Montgomery & Brett Erickson A FannieCo production William F Montgomery is an American stand-up comedian.  A native of Memphis Tennessee, William now resides in Austin Texas.  Under the tutelage of a top young rising comedian, Tony Hinchcliffe, & Brian ‘The Podfather' Redban, William has become a fan favorite & the longest serving Kill Tony Regular. William has performed in front of comedy icons such as Joe Rogan, Whitney Cummings, Russell Peters, Tiffany Haddish, Doug Stanhope, Tim Dillon, Doug Benson, Donnell Rawlings, Jeff Ross, Dane Cook, Tom Segura, Bert Kreischer, Ron White, Ari Shaffir, Big Jay Oakerson, Luis J Gomez, Dan Soder, Jim Gaffigan, Andrew Santino, Dom Irrera, Steve Simone, Brian Holtzman, Sal Vulcano, Ian Edwards, Greg Fitzsimmons, Shane Gillis, Kyle Dunnigan, Ms. Pat, Josh Potter, Mark Normand, Ryan Sickler, Eddie Pepitone, Josh Wolf, Moshe Kasher, Bonnie McFarlane, Steve Lee, Adam Ray, Andrew Shultz, Pauly Shore, Bob Saget, Michael Rapaport & Don Barris. Montgomery has garnered many monikers over the years: The Big Red Machine, The Vanilla Gorilla, The Memphis Madman, The Tennessee Tickler, The Strawberry Twist & The Raisin-Bread Kid. William regularly opens for Joe Rogan in the Austin Area. Along with David Lucas, William has previously hosted ‘Brothers in Cursive' & ‘Are We Really Brothers'. William has appeared on podcast such as ‘Jeremiah Wonders with Jeremiah Watkins', ‘Unlicensed Therapy with Ari Mannis', ‘Dead Air with Brian Holtzman', ‘Shenk with Sara Weinshenk' & ‘The Fat Pessimist with David Lucas'.#WilliamMontgomery #KillTony #Comedy

Witch Hunt
Ikponwosa Ero on Ending Witch Hunts

Witch Hunt

Play Episode Listen Later Jan 10, 2024 57:50


In this profound interview, Ikponwosa Ero unpacks her work advocating for human rights of victims of witchcraft accusations and ritual attacks. As a lawyer and a former United Nations Independent Expert on the Rights of Persons with Albinism, she shares her professional journey and personal experience as an advocate with albinism. Through the interview, she provides extensive data on the nature and scale of the problem, explaining the global presence of harmful practices beyond Africa, in North and South America and Europe. She talks about her contribution at the United Nations, emphasizing the importance of human rights framework in combating these harmful practices. The conversation also covers the need for grassroots collaborations, the collection of reliable data, the importance of cross-movement partnerships, and the role of climate change in these harmful practices.Recommended ReadingUnited Nations Human Rights Council Resolution 47/8. Elimination of harmful practices related to accusations of witchcraft and ritual attacksPapua New Guinea Sorcery and Witchcraft Accusation-Related Violence National Action PlanPan African Parliament Guidelines for Addressing Accusations of Witchcraft and Ritual AttacksReport of the Office of the United Nations High Commissioner for Human Rights: Study on the situation of the violations and abuses of human rights rooted in harmful practices related to accusations of witchcraft and ritual attacks, as well as stigmatizationRecommended ViewingIK Ero On Next Steps For Ending Witch Hunts TINAAWAHPSanguma: Everybody's BusinessNational Action PlanI Am Not a WitchSaving Africa's Witch ChildrenWebsites of NoteEnd Witch HuntsThe International Network against Accusations of Witchcraft and Associated Harmful PracticesGrassroots organizations working with The International NetworkInternational Alliance to End Witch HuntsStop Sorcery ViolenceStorymap explaining the dynamics of sorcery accusation related violenceSupport the show --- Send in a voice message: https://podcasters.spotify.com/pod/show/witchhunt/message

The Bison Insider
The Bison Insider - Episode 37

The Bison Insider

Play Episode Listen Later Dec 5, 2023 52:23


There is a lot of progress being made in mapping out the bison genome. Dr. Jim Derr of Texas A&M University rejoins the podcast to talk about his discovery of the gene that causes albinism. Jud Seaman of Quality Auction Services and Brennin Jack of the Jack Auction Group also update us on the latest animal sale results. 

Low Vision Moments
Going Through Space Sideways with J. Dollaz

Low Vision Moments

Play Episode Listen Later Nov 24, 2023 36:34


Recording artist J. Dollaz AKA Jahron Black joins Jennie from Brooklyn, NY. They fess up to messing up the things they've done a million times before, like rapping and podcasting. They also bounce brutal goalball stories off of one another, and examine whether there could be a temporary edible cure for blindness. Guest Bio:J.Dollaz AKA Jahron Black is a recording artist, goalball athlete, and dedicated community leader from Brooklyn, New York.Featured Song:  J.Dollaz "Therapy" (unreleased)Guest Description:Jahron is a Black man, with dark facial hair and tied back locks. He wears headphones and sits on a brown leather couch against a light blue wall. His shirt reads “Later turns into never”.Highlights:Show Open (00:26)About Jahron Black (01:49)Making Music (04:11)Effing Up in the Podcast Studio (05:07)Going Sideways in the Studio (09:54)Can Edibles Cure Blindness? (13:42)Tripping, Literally (15:11)About Goalball (18:01)Goalball Injuries (20:13)Blood on the Goalball Court (22:28)New York Association of Blind Athletes (26:59)Goalball Family (29:18)Follow J. Dollaz Online (31:34)Show Close (33:59)Links:J. Dollaz:  YouTube,  Facebook, InstagramMore from J.DollazDarryl Lenox, Comedian - www.DarrylLenox.com

The Realist & The Visionary
Episode 213- Synthetic Melanin for Synthetic People

The Realist & The Visionary

Play Episode Listen Later Nov 19, 2023 64:57


In a new study, scientists show that their synthetic melanin, mimicking the natural melanin in human skin, can be applied topically to injured skin, where it accelerates wound healing. These effects occur both in the skin itself and systemically in the body.There is a only one group of people that need melanin, let alone "synthetic melanin".Let's talk about it.https://www.therealistthevisionary.com

3MONKEYS
Indian Woman With Albinism Talks About Life at School and Work

3MONKEYS

Play Episode Listen Later Nov 18, 2023 4:19


https://www.youtube.com/watch?v=PlTxetBMhYY #2023 #art #music #movies #poetry #poem #photooftheday #volcano #news #money #food #weather #climate #monkeys #horse #puppy #fyp #love #instagood #onelove #eyes #getyoked #horsie #gotmilk #book #shecomin #getready

Low Vision Moments
Aging Like fine cheese with Brenda Anderson

Low Vision Moments

Play Episode Listen Later Oct 27, 2023 33:13


SUMMARY:  Brenda Anderson is a grandmother so wise and popular she doesn't drive but does need a nine-car driveway. Brenda and Jennie discuss aging like a fine cheese, scratch & sniff money, and how they learned about nose hair & crow's feet.   Episode Highlights:Introduction (0:00)Introduction of Brenda Anderson (1:27)What do you want people to know about you? (1:38)Jennie and Brenda discuss aging (4:06)Jennie shares a story about how she realized she had nose hair that other people could see. (6:16)Brenda shares a story about realizing what crow's feet are. (8:08)Who do you ask about these changes as you age? (9:47)The gym is Brenda's happy place and a second family. (10:44)Jennie and Brenda discuss sweating at the gym. (12:13)What life experiences have brought you to a place of wisdom? (16:01)Brenda shares how she drove a jet ski. (20:19)Jennie and Brenda share their love for shovelling snow. (20:51)Jennie and Brenda discuss shopping as visually impaired people. (24:42)There should be accessibility training for people who work in retail, customer service, etc. (26:54)Conclusion (29:33)    EPISODE NOTES:Guest Bio: Brenda Anderson is an active grandmother living her best life in Nova Scotia. She loves to dance, hit the gym, and spread good vibes wherever she goes.   DESCRIPTIVE TRANSCRIPTGuest description: Brenda has strawberry blonde hair tied back with bangs framing her face. She has blue eyes, fair skin, and wears a bright yellow v-neck sleeveless top. Brenda's seated on the floor, with a rocking chair, floral armchair, and bookshelf with CDs in the frame.   UPDATED - Host Description:  Jennie is a woman with shoulder-length white-blonde hair and strong glasses with purple rims. She has very pale skin and wears light makeup. Her facial expressions are animated, and she often speaks with her hands. She wears a small pink stud nose jewelry. The background includes two large bookcases full of a variety of books, DVDs, toys, and nicknacks.         

Low Vision Moments
Don't Sit in the Dip with Ramya Amuthan

Low Vision Moments

Play Episode Listen Later Sep 29, 2023 28:40


In this episode of 'Low Vision Moments' Jenny Bovard talks with guest, Ramya Amuthan about their most embarrassing food-related incidents: from tomato sauce-stained glasses to sitting on dips, cakes & a nice crab curry at a formal Sri Lankan family gathering, be careful where you place your meal because there just might be a blind or partially-sighted person nearby about to sit down. Host / Backdrop Description:Host: Jennie is a woman with shoulder-length white-blonde hair, strong glasses with purple rims. Her facial expressions are animated and she often speaks with her hands. The background includes two large bookcases, full of a variety of books, DVDs, toys, and nicknacks.  Ramya Amuthan co-hosts AMI's Kelly & Ramya and the podcast AMI Audio Book Review. She's a voice actor and an engaging storyteller based in Toronto. Kelly & Ramya: Airs weekdays at 2 p.m. Eastern on AMI-tv & AMI-audio featuring interviews and discussions about arts, entertainment and the lifestyle issues that matter to you.Episode HighlightsShow Open (0:00)Introducing Ramya Amuthan (01:27)The Joys and Dangers of Korean BBQ (02:03)All About Ramya (02:40)Jennie's Rosé-Coloured Glasses (03:59)Not-So-Sweet 16: Ramya's Worst Place to put a Birthday Cake (07:50)“Don't Sit in the Dip, Yvon!” (12:34)Crab Curry Catastrophe in Sri Lanka (14:28)The Awkward Aftermath (17:36)When Jennie Met Ramya: “the Post-Goalball Sweaty Hug” (18:08)Flippin' Mango: The Ottawa Wal-Mart Pineapple Incident (19:32)Ramya's Voice Acting Resume (26:15)Show Close (27:19)Links:About The Vale on Falling SquirrelThe Vale on AMI This Week ShortcutThe White Tiger on NetflixAbout GoalballAbout Low Vision Moments: Part story time, part comedy, part awareness driven, Jennie Bovard presents funny experiences that happen when you are blind or partially sighted.Jennie Bovard is a running, beer-drinking, thirtysomething with albinism. She loves trying all the things, making people laugh, and volunteering to create accessible sport and recreation opportunities in her community. Jennie, who has lived with partial sight all her life, has a diploma in film and TV production. Jennie lives in Halifax.About AMIAMI is a not-for-profit media company that entertains, informs and empowers Canadians who are blind or partially sighted. Operating three broadcast services, AMI-tv and AMI-audio in English and AMI-télé in French, AMI's vision is to establish and support a voice for Canadians with disabilities, representing their interests, concerns and values through inclusion, representation, accessible media, reflection, representation and portrayal.Learn more at AMI.caConnect on Twitter @AccessibleMediaOn Instagram @accessiblemediaincOn Facebook at @AccessibleMediaIncEmail feedback@ami.ca