Podcasts about neuromyelitis optica

Hosts: Carolyn McMakin, MA, DC Kim Pittis, LCSP, (PHYS), MT 00:33 Diving into Health Courses and Concepts 01:14 Exploring Frequency Specific Microcurrent (FSM) 01:58 Case Studies and Practical Applications 07:28 Mastering Palpation Techniques 17:24 Constitutional Factors in Patient Assessment 25:07 Addressing Post Shingles Neuropathy with FSM 28:39 Managing Postherpetic Neuralgia 29:44 Understanding Lupus and the Vagus Nerve 32:57 Hiatal Hernia and Stomach Acid Issues 37:41 FSM Symposium Excitement 39:29 Addressing Osteoporosis and Tendon Health 41:44 Challenges with Nerve Ablation 46:03 Neuromyelitis Optica and Arthritis Insights 50:08 Symposium Logistics and Final Thoughts   In the world of medical innovations, Frequency Specific Microcurrent (FSM) stands out as a technique with profound implications for patient care. This recent podcast episode, hosted by Dr. Carol and Kim Pittis, delves deep into the practical applications and theories surrounding FSM, making it a valuable resource for medical practitioners aiming to integrate this technology into their practice.   Understanding the Health Pyramid with FSM The podcast opens with Kim Pittis sharing insights from a recent course she attended, where the concept of a health pyramid was introduced. She highlights the importance of screenings, assessment, mobilization, movement, and stabilization, crucial parts of patient care in both biomechanics and the biotensegrity model. FSM, however, appears to transcend traditional modalities by offering versatile treatment options that aren't confined to specific conditions.   Exploring FSM Frequencies One of the key takeaways from Dr. Carol and Kim's discussion is their exploration of FSM frequencies, specifically the use of 124 – a frequency often used for healing scar tissue. Dr. Carol notes that while dissolving scar tissue, practitioners must ensure that stabilizers are ready to replace it for effective healing, emphasizing cautious application.   Palpation Techniques and Patient Assessment The podcast segment on mastering palpation techniques is particularly insightful for practitioners. Dr. Carol shares her unique approach to palpation, which involves 'seeing' with your fingers, a skill likened to a masterclass in perception. This technique allows practitioners to accurately assess and address scarring and other tissue abnormalities in patients, enhancing diagnostic precision.   Addressing Complex Conditions The hosts also navigate through complex conditions such as post-shingles neuropathy and lupus, offering invaluable insights into using FSM for managing these challenges. Dr. Carol explains her protocols for addressing nerve damage post-shingles, which often involves treating the damaged nerve to restore function and alleviate pain. For lupus, they emphasize the role of the vagus nerve and the importance of identifying triggers and stressors that exacerbate the condition.   The Role of FSM in Osteoporosis and Tendon Health For practitioners dealing with osteoporosis, Kim highlights the importance of mechanical force and tensile pull on bones to strengthen them. She advocates for the use of FSM to aid in muscle recovery post-exercise, promoting sustained physical activity as a preventive measure against bone density loss.   Advances in Medical Practice with FSM The podcast wraps up with an enthusiastic preview of the upcoming FSM Symposium, suggesting further learning opportunities for practitioners eager to expand their knowledge and application of FSM in their daily practice. The event promises to feature an array of fascinating case studies and scientific explorations into the mechanisms of different frequencies. For medical practitioners, this podcast episode provides a detailed and practical perspective on the application of Frequency Specific Microcurrent. By integrating the lessons shared by Dr. Carol and Kim Pittis, practitioners can enhance their diagnostic abilities, expand their treatment arsenal, and ultimately, improve patient outcomes. Whether dealing with scar tissue, chronic conditions, or improving overall patient care, FSM presents an innovative approach to modern medicine.  

Drs. Justin Abbatemarco, Marius Ringelstein, and Ilya Ayzenberg discuss a new class of complement inhibitors that we're using in NMOSD. Show reference: https://www.neurology.org/doi/full/10.1212/WNL.0000000000209888

Dr. Justin Abbatemarco talks with Drs. Marius Ringelstein and Ilya Ayzenberg about the effectiveness and safety of Eculizumab in routine clinical care. Read the related article in Neurology. Disclosures can be found at Neurology.org.

In this week's podcast, Neurology Today's editor-in-chief highlights articles on the potential of a new blood biomarker for ALS, a PACP-targeted migraine therapy, and a real-world review of data on eculizumab for neuromyelitis optica spectrum disorder. This Podcast is being Sponsored by LocumTenens.com

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Dr. Shuvro Roy and Dr. Alexander Gill discuss his paper  "Neurologic Outcomes in People with Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorder Exposed To Immune Checkpoint Inhibitors." Show reference:  https://www.aan.com/conferences-community/summer-conference/abstracts/ This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.

Dr. Rae Bacharach discusses the Neurology Today article, "How Long-Term Disability Progression Is Different in Neuromyelitis Optica and Myelin Oligodendrocyte Glycoprotein-antibody Associated Disease" by Susan Kreimer, available in the March 7th issue of Neurology Today or at neurologytoday.com.  Show References:  https://journals.lww.com/neurotodayonline/fulltext/2024/03070/how_long_term_disability_progression_is_different.3.aspx?WT.mc_id=HPxADx20100319xMP  https://onlinelibrary.wiley.com/doi/10.1002/ana.26858  This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.

At 25, Benny Schwartz was diagnosed with a rare autoimmune disease called NeuroMyelitis Optica, something only 4,000 to 8,000 people have in the United States.  That caused Benny to lose his vision. Now at 35, he is legally blind, but he has turned to art as a way to deal with his blindness, mental health and emotional wellbeing. The Pittsburgh-based artists works under the name Benny Blindspots. He just had 50 pieces of his art included in a collection that is being displayed at Bank of America locations across the county.

In this episode, we review the high-yield topic of ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Neuromyelitis Optica⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ from the Neurology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets

Christine Ha, an award-winning blind chef and restauranteur, shares her experience grappling with neuromyelitis optica spectrum disorder (NMOSD). Facing relapses with the inability to walk and feed herself that challenged her independence, she leaned on the support from family and friends. As she lost her sight due to optic neuritis in both eyes, Ms. Ha had to embark on a journey of rediscovery in the kitchen, starting with the fundamentals. Winning MasterChef Season 3 marked a turning point, propelling her culinary career forward despite the obstacles posed by her disability.  NMOSD is an autoimmune disease in which an antibody attacks water channels on astrocyte cells in the optic nerves, spinal cord and sometimes the brain. Attacks or relapses can be devastating and incomplete recovery from attacks is typical. Like Ms. Ha, some people living with the condition can be misdiagnosed with multiple sclerosis. A blood test for the aquaporin-4 antibody is key to getting diagnosed correctly early. Since 2019, highly effective treatment options have been FDA-approved that reduce relapses by 77-94%. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Christine Ha, "The Blind Cook".  Her first cookbook, Recipes from My Home Kitchen, was a New York Times best-seller. Ms. Ha's first restaurant in Houston, The Blind Goat, was named a semi-finalist for 2020 Best New Restaurant in America by the James Beard Foundation. She was also named a James Beard finalist for Best Chef in Texas in 2022. Michael Levy MD PhD, Associate Professor at Harvard Medical School and Director of the Neuroimmunology Clinic and Research Laboratory    

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In this episode we are joined by Dr Mirasol Forcadela to discuss Neuromyelitis Optica Spectrum Disorder

A review of neuromyelitis optic spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein associated disease (MOGAD) with Drs. Kevin Yan and Aaron Bower. Note: This podcast is intended solely as an educational tool for learners, especially neurology residents. The contents should not be interpreted as medical advice.Further Reading:Costello F. Neuromyelitis Optica Spectrum Disorders. Continuum (Minneap Minn). 2022 Aug 1;28(4):1131-1170. doi: 10.1212/CON.0000000000001168. Erratum in: Continuum (Minneap Minn). 2022 Dec 1;28(6):1859. PMID: 35938660. Longbrake E. Myelin Oligodendrocyte Glycoprotein-Associated Disorders. Continuum (Minneap Minn). 2022 Aug 1;28(4):1171-1193. doi: 10.1212/CON.0000000000001127. PMID: 35938661; PMCID: PMC9523511.Banwell B, Bennett JL, Marignier R, et al. Diagnosis of myelin oligodendrocyte glycoprotein antibody-associated disease: International MOGAD Panel proposed criteria. Lancet Neurol. 2023 Mar;22(3):268-282. doi: 10.1016/S1474-4422(22)00431-8. Epub 2023 Jan 24. PMID: 36706773.

Taylor Ann Macey lives Greater by living her life to the fullest with a devastating disease.  She pursues what  she is passionate about and lives as though tomorrow is never promised.  She loves to learn new things, find new adventures, work hard, and play harder.  Since much of what happens with her body is out her control, she takes exquisite care of her mental health to manage the ups and downs of chronic illness.  As a Life Coach and Nutrition Coach who specializes in mindset work and body recomposition, Taylor Ann helps women with autoimmune conditions simplify their autoimmune wellness and create the weight and health they've always wanted. Enjoy the conversation with Taylor Ann and be inspired!Connect with Taylor Ann:Website: TaylorAnnMacey.comInstagram: TaylorAnnMaceyFacebook: Autoimmune Warrior Thank you so much for listening!Subscribe on Apple Podcasts, follow us on Instagram, and like us on Facebook! THANK YOU so much for listening!Subscribe on Apple Podcasts, follow us on Instagram, and like us on Facebook!Shop LivGreater Tees, Hoodies, Crew Sweatshirts, and More!

Today we have the inspiring Kathryn Ford in the studio. Kathryn is an award-winning Women's Empowerment Coach, International Speaker, and Best-Selling author. She shares her incredible journey through the misdiagnosis of Multiple Sclerosis, the diagnosis of Neuromyelitis Optica and getting out of an abusive relationship. The mindset she developed through the toughest moments of her life. How she was able to overcome aspects of her diagnosis and keeping a positive mindset through the toughest times of her life. Kathryn is graciously giving away 4 one-on-one coaching sessions with her. We will send out the raffle link through our Newsletter next week!! Sign up here: https://view.flodesk.com/pages/606fcd896b2fd875a48618b6 KATHRYN FORD RESOURCES: WEBSITE: www.excellenceinstitute.com IG: @kathrynfordofficial ABOUT MARIA MENOUNOS: Emmy Award-winning journalist, TV personality, actress, 2x NYT best-selling author, former pro-wrestler and digital entrepreneur and brain tumor survivor, Maria Menounos passion is to see others heal and to get better in all areas of life. ABOUT BETTER TOGETHER WITH MARIA MENOUNOS: Better Together with Maria Menounos is a daily digital talk-show that brings you the world's leading healers, experts, celebrities and game-changers to share groundbreaking secrets and tips to getting better in all areas of life. BETTER TOGETHER'S RESOURCES: Better Together with Maria Menounos is proud to be partnered with Macy's! Maria worked there growing up and has reconnected with them to curate a page filled with her fashion, gifts and other accessory picks. Check out her hand selected items at www.macys.com/bettertogether Maria's personally curated Macy's page: www.macys.com/bettertogether Check out www.mariamenounos.com for the “cliff notes” of all our episodes where we compile the life-changing lessons into one blog called "life-hacks." Plus, we share Maria's favorite new products & her must-haves! Come join our inner Super Heal Squad on Patreon for monthly live zoom Heal Events with Maria and world-leading experts and healers, bonus content from the team, and access to a community of individuals wanting to grow and get better. Click the link to join: https://www.patreon.com/BetterTogetherWithMaria Be sure to follow us on social! IG & TikTok: @bettertogetherwithmaria DISCLAIMER: This Podcast and all related content [published or distributed by or on behalf of Maria Menounos or Mariamenounos.com] is for informational purposes only and may include information that is general in nature and that is not specific to you. Any information or opinions expressed or contained herein are not intended to serve as or replace medical advice, nor to diagnose, prescribe or treat any disease, condition, illness or injury, and you should consult the health care professional of your choice regarding all matters concerning your health, including before beginning any exercise, weight loss, or health care program. If you have, or suspect you may have, a health-care emergency, please contact a qualified health care professional for treatment. Any information or opinions provided by an guest experts or hosts featured within website or on Company's Podcast are their own; not those of Maria Menounos or the Company. Accordingly, Maria Menounos and the Company cannot be responsible for any results or consequences or actions you may take based on such information or opinions. Subscribe To Better Together w/ Maria Menounos: https://www.youtube.com/c/mariamenounos Subscribe & Review Better Together w/ Maria Menounos: https://podcasts.apple.com/us/podcast/better-together-with-maria-menounos/id1320060107 Join Our Patreon: www.patreon.com/bettertogetherwithmaria

Dr. Paul Crane discusses Neuromyelitis optica spectrum disorder, also known as NMOSD. This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.  

Dr. Robert John Sharkus, III, DO and Richa Thakkar discuss their abstract, "FDA Approved Treatments for Neuromyelitis Optica Spectrum Disorder in Clinical Practice: A Survey of Academic Neuroimmunologists". You can find the abstract, along with all of our summer conference abstracts here: https://www.aan.com/MSA/Public/Events/Details/15177 This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.

Kelly Ann Gorman was misdiagnosed with Multiple Sclerosis and Neuromyelitis Optica. She started to heal her body by creating her own recipes and caring more about her health and wellness. Kelly took a stance to learn about medical malpractice law since no firm would represent her since she is still living. She took it upon herself to become her own attorney for not only one but six medical malpractice legal cases. Now as a patient advocate, she shares her story on social media and on her podcast to help others become more aware of the importance of being an advocate for your own health and medical care. Not only a patient advocate. Kelly is also the author of Everything is Messy. She shares her knowledge and organization tips, strategies as well as budget-friendly vegan recipes. The new book she is working on emphasizes gut health as a means to heal various health problems. Kelly offers coaching and consulting for podcast production and a creative coaching program to help you level up on LinkedIn. Be sure to check out the  Kelly Ann Cares Podcast where you can hear more about health, healing, and wellness. Watch the Episode on Youtube CONNECT WITH KELLYWEBSITE: https://kellyanngorman.comhttps://everythingismessy.comKELLY ANN CARES PODCAST: https://kellyanngorman.comON DEMAND-A 2022 BUSINESS EXPERIENCE: https://everything-is-messy-collection.myshopify.com/products/on-demand-a-2022-business-experienceTIKTOK: https://www.tiktok.com/@kellyanngormanofficialLINKEDIN NEWSLETTER: https://www.linkedin.com/newsletters/6866512629620453376WEEKLY NEWSLETTER: https://kellyanngorman.com/business-mindset-organizational-toolsLINKEDIN: https://www.linkedin.com/today/author/kellyanngormanINSTAGRAM: @kellyanngormanofficialYOUTUBE: https://www.youtube.com/kellyanngormanPINTEREST: https://www.pinterest.com/kellyanngorman

Episode 437 Wellness Wednesday episode in which we talk about Multiple Sclerosis stuff, Neuromyelitis Optica (NMO) vs MS, Probiotics and Weight Loss, Secondary Progressive Multiple Sclerosis Support, Memory Loss and more for Multiple Sclerosis Health and MS. Send comments, questions and tips to kevintheduckpool@gmail.com please help us out by rating and reviewing us and telling a friend. Also check out audio and video versions of Crimson Cowl Comic Club & Under the Cowl podcasts. A fun variety of great people talk comic books, entertainment or whatever and you can see or hear me on many episodes of those podcasts as well with many more great episodes to come out in the future. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

Join Dr. Mitzi for great discussion with her Superfriend Dr. Kottil Rammohan. This will be an informative discussion about our evolving understanding of NMO diagnosis and treatment and why people are being misdiagnosed with MS!

Multiple sclerosis frequently causes visual impairment. 70% of people living with the disease can develop optic neuritis at some point and often the first sign of MS. The symptoms, medical evaluation, treatment and prognosis of optic neuritis are conveyed. Besides multiple sclerosis, other causes are discussed including MOG antibody-associated disease (MOGAD) and neuromyelitis (NMO). Double vision and shaky (or jumpy) vision are other concerning visual symptoms for people with MS. The reason for these eye movement abnormalities and detailed treatment options are covered. Experts share the latest advancements in vision research for those living with multiple sclerosis. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Dr. Anneke van der Walt is an Associate Professor of Neurology at Monash University in Melbourne, Australia. She is the head of the MS and Neuro-ophthalmology Research Group. She completed her undergraduate work in South Africa and completed her neurology training and PhD at the University of Melbourne. She is also the Chief Operating Officer of MSBase Foundation. Dr. Tariq Bhatti is a neuro-ophthalmologist currently at Kaiser Permanente in Northern California. He completed his neuro-ophthalmology fellowship at Emory.  Dr. Bhatti was most recently a Professor of Ophthalmology and Neurology at Mayo Clinic and previously Chief of Neuro-ophthalmology at Duke University. 

Multiple sclerosis (MS) is a disease of the brain and spinal cord (central nervous system), which can cause a disability. In MS , a person's immune system attacks the protective nerve fiber covering and causes communication problems between your brain and the rest of your body to stop. Though this disease has been around for a long time, it doesn't seem to be as diagnosed or even acknowledged in our African community when compared to the common infectious diseases. Such diseases, though rare, are slowly plaquing our community and it is about time we talk about them. Today, our guests speak extensively on MS from living with it to the course of therapy. We hope this episode is as resourceful as it was for us.   Get to meet our guests:   Dr. Leonard Ngarka is a Neurologist who works at Yaounde Central Hospital, Cameroon. He is also a Lecturer at the Faculty of Medicine and Biomedical Sciences, The University of Yaoundé, Cameroon. He will be further educating us on MS and Neuromyelitis Optica.   Contact: Email -  lngarka@yahoo.com   Fuen Beri is the second of four children who live in the United Kingdom (UK). She has been living in the UK since 2005, shortly after high school. She now works for a global consultancy based in the heart of London and her favorite quote is - "no two days are the same." She will be sharing with us her diagnosis with Multiple Sclerosis(MS).   Contact: Email - Fuen.beri@gmail.com Things You Will Learn in This Episode:  [00:01 – 03:00] Introduction Introducing our guests - Dr. Leonard Ngarka & Fuen Beri [03:00 – 17:00] Understanding Multiple sclerosis (MS) The lack of data on multiple sclerosis in Africa Understanding the causes and symptoms of MS The under-reporting of multiple sclerosis in Africa The importance of early detection [17:00 – 43:00] Fuen Ngwa Shares Her Story With MS Early symptoms of MS in childhood Getting misdiagnosed in Cameroon The lack of proper diagnosis in Africa Fuen shares her struggles with MS How she keeps her head up and motivated  [43:00 - 1:06:00] Risks Factors, Prevention & Stigmatization The genetic causing factors Preventive measures we can take How the lack of some important minerals can cause MS The cost of treating MS in Africa Stigmatization of people living with MS [1:06:00 - 1::] Medications, Advice, Mindset & Motivation Dr. Ngarka educates us on some medication used in treating MS Fuen educates us on the mindset and motivation needed General advice with patients living with multiple sclerosis The importance of listening & knowing your body Government need to make drugs accessible and subsidize How to contact Dr. Leonard Ngarka & Fuen Beri [55:00 – 1:00:004] Final Discussions Final words from Dr. Leonard Ngarka Final words from Fuen Beri Final words from Anyoh LEAVE A REVIEW and tell us what you think about the episode so we can continue putting out the best content just for you! Connect with Living African Podcast You can connect with us on Facebook, Instagram, YouTube, Twitter, or send us an email at hello@livingafricanpodcast.com. Check out our website www.livingafricanpodcast.com for more resources and to learn more. You can connect with Anyoh on Facebook (@anyohf), Instagram (@anyohfombad), and Twitter (@anyohfombad).

Good morning world, good afternoon, good evening, and good night! Welcome back to Tosh Base podcast. This is episode #057. In today's conversation, you will hear from Dr. Trecia Palmer. She is full of life and passionate about her story and life! She is a medical doctor by training. She is currently completing an integrated Master's by Research in Cardiovascular Biology and a Ph.D. in Cardiovascular Science at the University of Edinburgh. She has endured several surgical procedures and endured many hospitals stays. She has also been misdiagnosed for 15 years with Neuromyelitis Optica- which is a rare, severe central nervous system autoimmune illness that affects the optic nerve and spinal cord. She has also been blind twice, on life support, and paralyzed seven times. Trecia adds that throughout all of this, as Maya Angelou says, “But still I rise!”. Please, take a listen!Enjoy episode 057, and be inspired to love and share your story today! You can connect with me on Instagram and Facebook @toshbasepodcast or email me at toshbasepodcast@gmail.com. Remember to download, share, rate, and subscribe. Tosh Base Jingle and Stinger by @oshanemais on Instagram.Cheers! ❤️❤️

Six weeks before finishing her residency in internal medicine, Summer started experiencing bizarre neurological symptoms in her left leg. Instead of focusing on becoming a doctor she suddenly became the patient, searching for answers to her mysterious symptoms. Summer was initially misdiagnosed with multiple sclerosis, learning years later that she […]

Dr. Nicolas Collongues discusses pregnancy in patients with neuromyelitis optica spectrum disorder.

Neuromyelitis optica spectrum disorder (NMOSD) is a rare auto-immune that can often be confused with more common conditions, like multiple sclerosis. Ophthalmologist are often the first persons to see these patients but they may be unfamiliar with the symptoms of NMOSD and that can lead to delays in diagnosis.This CME module about suspecting and diagnosing managing patients with NMOSD during an ophthalmologic visit is hosted by Michael Levy, MD, PhD, Associate Neurologist at Massachusetts General Hospital and Prem Subramanian, MD, PhD, Professor of Ophthalmology at the University of Colorado Hospital. The CME is jointly provided by American Academy of CME, Inc. and CheckRare CE, Inc, and supported by an educational grant from Alexion Pharmaceuticals.To earn a CME credit, go to https://checkrare.com/learning-center/courses/

Dr. Zsolt Laszlo Illés discusses his paper, "Nationwide prevalence and incidence study of neuromyelitis optica spectrum disorder in Denmark". Show references: https://n.neurology.org/content/91/24/e2265

Dr. Geoffrey Eubank, M.D., Medical Director of the Mid Ohio MS Center at OhioHealth Neurological Physicians, discusses 2 Phase lll clinical trials of Enspryng™ (satralizumab-mwge) that demonstrated robust efficacy and safety profiles for the treatment of adults living with anti-aquaporin-4 (AQP4) antibody-positive NMOSD, a rare disabling neurological disorder often misdiagnosed as multiple sclerosis. Enspryng represents significant therapeutic progress for the NMOSD community, offering the only FDA-approved injectable treatment option that can be self-administered every four weeks by a person living with NMOSD or a caregiver following training from a healthcare provider.

My guest this episode is Victor Valimaki. He was the first Edmontonian to fight in the UFC. Back in 2018 Vic and I were supposed to sit down and talk about his fight career, but he was suddenly struck by a serious medical condition, called Neuromyelitis Optica, which threw his life into chaos. Two and a half years later – not to mention 17 MRI's, 7 spinal taps, two lung biopsies, a brain biopsy, and countless other medical procedures – Vic is doing substantially better and I finally got a chance to meet him face-to-face. Episode Links Victor Valimaki - Facebook | Fight Stats Neuromyelitis Optica

Dr. Jose Posas, a sports neurologist at Ochsner Clinic Foundation, discusses his recente NeuroByte entiteld, "Diagnosing Neuromyelitis Optica Spectrum Disorders". Show references: https://learning.aan.com/diweb/catalog/item?id=5204467

Dr. Kathleen Hawker, M.D., Group Medical Director, Neuroscience at Genentech discusses the recent FDA approval of Enspryng™ (satralizumab-mwge) and the findings from the clinical trial program for the treatment of adults living with anti-aquaporin-4 (AQP4) antibody-positive NMOSD, a rare disabling neurological disorder often misdiagnosed as multiple sclerosis. She explains the unique mechanism of action of IL-6 receptor activity (which is believed to be a clinical hallmark of NMOSD) and the novel recycling technology which allows for subcutaneous dosing every four weeks.

Dr. Rae Bacharach discusses a recent Neurology article entitle,d "Monoclonal Antibody Treatment During Pregnancy and/or Lactation in Women with MS or Neuromyelitis Optica Spectrum Disorder". Show references: https://nn.neurology.org/content/7/4/e723 http://hwcdn.libsyn.com/p/c/e/b/ceb419377948d273/March_03_2020_Neurology_Podcast_ver2.mp3?c_id=66015281&cs_id=66015281&expiration=1597116648&hwt=83b580f40d46eaee8408435679047899 https://neurology.libsyn.com/website/april-10-2018-issue  

In this replay of previous episodes, we features discussions on the treatment of neuromyelitis optica. We begin with Dr. Ted Burns' interview of Dr. Stacey Clardy from Dec. 2019 on treatment and prevention of disease activity. From October 2019, Dr. Stacey Clardy talks with Dr. Sean Pittock on eculizumab in aquaporin-4–positive neuromyelitis optica spectrum disorder. The 3rd segment is from Nov. 2019 and features Dr. Clardy's talk with Dr. Silvia Tenembaum about prognostic indicators of improvement with therapeutic plasma exchange in pediatric demyelination. Next, there's Stacey Clardy's talk with Dr. Richard Burt on autologous, nonmyeloablative hematopoietic stem-cell transplantation for neuromyelitis optica. Finally, Dr. Jeff Ratliff talks with Dr. Maureen Mealy, from May 2020, about scrambler therapy for NMO-related pain. 

Multiple Sclerosis News Today columnist, Jenn Powell discusses the commonalities of pain and fatigue in patients with Neuromyelitis Optica Spectrum Disorder and Multiple Sclerosis. Are you interested in learning more about Multiple Sclerosis? If so, please visit https://multiplesclerosisnewstoday.com/

Maureen A. Mealy, PhD, RN discusses the findings from her study on Scrambler Therapy for pain in neuromyelitis optica.  You can read the study here: https://n.neurology.org/content/94/18/e1900

Dr. Richard Burt discusses the main takeaways from his paper on autologous, nonmyeloablative hematopoietic stem-cell transplantation for neuromyelitis optica.

Dr. Sean Pittock discusses the main takeaways from his article on eculizumab in aquaporin-4–positive neuromyelitis optica spectrum disorder.

This episode of the podcast is with the one and only Chelsey Tucker. Chelsey has a truly amazing story...here is the cliff note version ________________________________________________________________ “You don’t need sight to have a vision.” – Chelsey Tucker While she may not be able to see the vibrant colors of her stunning paintings, this does not stop Chelsey Tucker from sharing her beautiful collection that will debut at the O Gallery on April 18th. Diagnosed with a very rare autoimmune disease, Neuromyelitis Optica or NMO, which leaves her color blind and visually impaired, Chelsey uses emotion to feel the painting while creating. She paints as an expression of how she sees the world. This is a notion that is resonating directly with her rapidly growing clientele. Chelsey has been drawn to the creative arts since she was a child, singing and songwriting for several years. But it wasn’t until 2018 that she joined the arts community professionally. She began by posting photos of her paintings to her social media accounts, sharing only with family members and close friends. Falling in love with her paintings, her friends and family encouraged her to share these gifts with the world. Thus, kick starting her quick rise within the Nashville scene as an in-demand artist. “Do not let your circumstances derail your success. You can discover new gifts.” NMO doesn’t just affect Chelsey’s vision. During periods of relapse, those with NMO often lose feeling in their hands. While this may seem like a deterrent and a provocation to stop altogether, this is not an option for Chelsey. She needs to create. Her subjects and methods may change depending on her symptoms, but this certainly does not prevent her from maintaining the same level of creativity and professionalism for which she is known. When holding a brush is no longer an option, she will use a technique involving her fingers directly on the canvas and a special pouring method. “Elements of creativity are required in order to establish new norms, especially with how this disease progresses.” Residing just outside of Nashville TN with her husband and their 5 children, Chelsey prioritizes family above all things. She derives a great deal of inspiration from her family and they support her every step of the way. She is also a believer in giving back to the community. Proceeds from gallery sales will benefit the Guthy Jackson Foundation, which donates to those afflicted with NMO. Contributions can be made directly to guthyjacksonfoundation.org. ________________________________________________________________ Such an incredible person that has overcome so much and has a truly remarkable talent in her art. Chelsey's outlook on life and her overall energy is so inspiring. Definitely an amazing example of everything we are about here at Spread The Positive. She has some amazing insights on the typical podcast topics and lives out our mission better than most. Very grateful to have crossed paths with Chelsey and look forward to collaborating with her in the future. Be sure to check her out on Instagram and Facebook @chelseytuckerart. Chelsey, thank you for being on the pod and all you do to Spread The Positive!

This special Delayed Recall episode is the second installment of our new Practice Current segment. In this episode, Dr. Luca Bartolini speaks with neuromyelitis optica (NMO) experts Dr. Tarso Adoni and Dr. Michael Levy. They discuss the results of a recent Practice Current (a section of Neurology® Clinical Practice) survey regarding NMO treatment, and share their thoughts on best practices. This is the first appearance of this interview in the podcast.

Open Forum on Neuromyelitis Optica Spectrum Disorder

Tommy Edison teams up with Christine Ha (winner of MasterChef season 3) to show the differences between being blind since birth like himself and becoming blind later in life like Christine by having director/producer Ben Churchill asking each of them the same questions about topics like dreaming, eye surgery, and if they wish they were born blind or lost their sight later in life. Tommy’s blindness is caused by an underdeveloped optic nerve and Christine’s blindness is caused a rare autoimmune disease called Neuromyelitis Optica.

This month we talk about multiple sclerosis (MS) and a condition called neuromyelitis optica (NMO)...listen to learn more!Support the show (https://nursem.org/en/home/)

In the Season 1 Premiere, Kathy reveals her personal life as she explains her Neuromyelitis Optica disease timeline, which ultimately influenced her decision to pursue a new treatment.

1) Pregnancy outcomes in aquaporin-4 positive neuromyelitis optica2) What's Trending: Safety and tolerability of resveratrol for Alzheimer disease3) Topic of the month: Endovascular Stroke Therapy This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Melanie Ward interviews Dr. Maria Isabel S. Leite about her paper on pregnancy outcomes in aquaporin-4 positive neuromyelitis optica. Dr. Ted Burns is interviewing Dr. R. Scott Turner for our “What's Trending” feature of the week about his paper on a randomized, double-blind, placebo-controlled trial of resveratrol for Alzheimer disease. In the next part of the podcast Dr. Prachi Mehndiratta interviews Dr. Pooja Khatri about the topic of broad overview of the new clinical trials in endovascular stroke therapy. DISCLOSURES: Dr. Leite serves as an editorial board member for Neuromuscular Disorders; has received travel grant and speaking honoraria from Biogen Idec and travel grant from Novartis; is supported by NHS National Specialized Commissioning Group for Neuromyelitis Optica, UK and by NIHR Oxford Biomedical Research Centre.Dr. Ted Burns serves as Podcast Editor for Neurology®; and has received research support for consulting activities with UCB, CSL Behring, Walgreens and Alexion Pharmaceuticals, Inc.Dr. Turner serves on the data safety and monitoring board for the National Institute on Aging; serves as an editorial board Member for Frontiers in Neuroscience and Neuropsychology and Cognition; receives research support from the National Institute on Aging.Dr. Khatri provided expert witnessing for stroke cases over last two years; receives research support from Penumbra, Inc, Genentech, Inc. and the NIH.

Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)

Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101

In this podcast, Dr Jeffrey Bennett discusses his review article “The Treatment of Neuromyelitis Optica”.

Neuromyelitis optica (NMO) predominantly affects women, some in childbearing age, and requires early therapeutic intervention to prevent disabling relapses. We report an anti-AQP4 antibody-seropositive patient who became pregnant seven months after low-dose (100 mg) rituximab application. Pregnancy showed no complications, and low-dose rituximab restarted two days after delivery resulted in neurological stability for 24 months. Remarkably, her otherwise healthy newborn presented with anti-AQP4 antibody and reduced B lymphocyte counts in umbilical cord blood, which normalized three months later. Confirming and extending previous reports, our case suggests that low-dose rituximab might be compatible with pregnancy and prevent rebound NMO disease activity postpartum.

1) Helsinki model cutting stroke thrombolysis delays and 2) Topic of the month: Living Legends Interviews. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Andy Southerland interviews Dr. Atte Meretoja about his paper on Helsinki model cutting stroke thrombolysis delays. Dr. Roy Strowd is reading our e-Pearl of the week about transient global amnesia. In the next part of the podcast Dr. Stacey Clardy interviews Dr. Vanda Lennon about establishing the Neuroimmunology Laboratory at the Mayo Clinic, her contribution to the field of neurology and advice to our younger listeners now beginning their careers. The participants had nothing to disclose except Drs. Southerland, Meretoja, Strowd, Clardy and Lennon.Dr. Southerland serves as Podcast Deputy Editor for Neurology® and serves as Clinical Research Advisor for Totier Technologies, Inc. Dr. Meretoja serves as an editorial board member of the International Journal of Stroke; receives research support from Sigrid Juselius Foundation, Biomedicum Helsinki Foundation and Finnish Medical Foundation.Dr. Strowd serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Clardy served on the editorial team for the Neurology® Resident and Fellow Section.Dr. Lennon performs service testing for aquaporin-4 autoantibodies on behalf of Mayo Collaborative Service Inc., an agency of Mayo Foundation; receives royalties and license fee payments for the intellectual property: Marker for Neuromyelitis Optica; receives research support from the NIH.

Background: The diagnostic and pathophysiological relevance of antibodies to aquaporin-4 (AQP4-Ab) in patients with neuromyelitis optica spectrum disorders (NMOSD) has been intensively studied. However, little is known so far about the clinical impact of AQP4-Ab seropositivity. Objective: To analyse systematically the clinical and paraclinical features associated with NMO spectrum disorders in Caucasians in a stratified fashion according to the patients' AQP4-Ab serostatus. Methods: Retrospective study of 175 Caucasian patients (AQP4-Ab positive in 78.3%). Results: Seropositive patients were found to be predominantly female (p < 0.0003), to more often have signs of co-existing autoimmunity (p < 0.00001), and to experience more severe clinical attacks. A visual acuity of 1 myelitis attacks in the first year were identified as possible predictors of a worse outcome.

Fortschritte bei Multipler Sklerose, Collegium Publicum der Aerztekammer Wien Wien vom 17.01.2009

In neuromyelitis optica (NMO), the monoclonal B-cell antibody rituximab is a therapeutic option. Little is known about the course of NMO and the safety of rituximab during pregnancy. In this study, we report the clinical course of a patient with NMO after application of rituximab 1 week before inadvertent conception. Mother and child did not experience any adverse event, and the postpartum development of the baby was completely normal up to 15 months. Clinical course of NMO was stable during the entire pregnancy. This case illustrates a favorable outcome in a pregnant NMO patient and her child after therapy with rituximab.

Background: A polyspecific, intrathecal humoral immune response against neurotropic viruses such as measles, rubella and varicella zoster virus (MRZ reaction, MRZR) is present in 80--100% of patients with multiple sclerosis (MS), but has not to date been evaluated in patients with neuromyelitis optica (NMO).Aims: To evaluate whether MRZR distinguishes NMO and MS.Methods: 20 patients with NMO and 42 with MS were included. The intrathecal synthesis of antibodies against measles, rubella and varicella zoster virus was detected by calculation of the respective antibody indices (AI).Results: A positive MRZ reaction, as defined by a combination of at least two positive AIs, was found in 37/42 MS, but in only 1/20 NMO patients (p

Es werden zwei Fälle von Neuromyelitis optica beschrieben, die jeweils eine hochgradige Erhöhung der Proteine im Liquor aufwiesen. Während ein Patient nach 6monatigem Krankheitsverlauf starb und pathologisch-anatomisch untersucht werden konnte, überlebte der andere Patient mit erheblichen Residuen. Dieser Fall zeichnete sich dadurch aus, daß deutlich erhöhte IgA- und IgM-Werte sowohl im Liquor als auch im Serum vorlagen. Es wird diskutiert, ob die gefundenen Liquorveränderungen möglicherweise eine Abgrenzung entsprechender Fälle gegenüber der multiplen Sklerose zulassen.