Podcasts about Transverse myelitis

Acute transverse myelitis (ATM) is an inflammatory demyelinating disorder of the spinal cord that can be either idiopathic (IATM; see this term) or secondary to a known cause (SATM; see this term)

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Best podcasts about Transverse myelitis

Latest podcast episodes about Transverse myelitis

Pushing Forward with Alycia | A Disability Podcast

Welcome Dana Mathewson, wheelchair tennis Paralympic Athlete In this episode of Pushing Forward with Alycia, host Alycia Anderson sits down with Dana Mathewson, a two-time Paralympic athlete who is currently preparing for the 2024 Paris Paralympics. Dana shares her incredible journey from being diagnosed with Transverse Myelitis at age 10 to becoming the top-ranked American woman in wheelchair tennis. With multiple titles, including a Wimbledon Championship and two gold medals from the Parapan American Games,  Dana shares how she discovered wheelchair tennis at age 13, the significant role her mother played in her life, and how her competitive spirit fueled her rise to the top of the sport. She also delves into the impact of para sports on changing societal perceptions of disability and her ambitions as she gears up to represent the United States in Paris. Key Moments: Dana's Diagnosis and Early Challenges: Dana opens up about her sudden diagnosis with transverse myelitis at the age of 10 and the impact it had on her life and self-identity as a young athlete. Discovering Wheelchair Tennis: Dana shares how she found wheelchair tennis at age 13, thanks to her mom's encouragement, and the immediate connection she felt with the sport. Role Models in Adaptive Sports: Dana discusses the powerful influence of athletes like Karen Korb and Sharon Clark, who helped shape her belief in her own potential.. Looking Ahead to Paris 2024: Dana shares her focus and preparation for the upcoming Paris Paralympics and her continued commitment to growing the next generation of adaptive athletes. Quote: "Chase butterflies, because good things usually happen from them." - Dana Mathewson Moments: 0:00 - Introduction and Today's Guest 0:30 - Dana's Journey with Transverse Myelitis 3:15 - Discovering Wheelchair Tennis 6:45 - The Role of Family Support 10:20 - Competitive Drive and Achievements 14:05 - Winning the Parapan American Games 18:30 - The Power of Para Sports 21:45 - Looking Ahead to Paris 2024 26:10 - Dana's Pushing Forward Moment 28:00 - Conclusion and Final Thoughts Follow Dana Mathewson: Instagram | Twitter | Facebook | Website Connect with Alycia: Instagram | LinkedIn | Book Alycia for Speaking | Book Alycia to Train Your Employees in Disabling Ableism | Alycia's DEI Micro Learning Video Series | Feedback Learn more about your ad choices. Visit megaphone.fm/adchoices

Clever Women Co.
Teaching Brain Cells To Do Things OUTSIDE The Body: Welcome To The World Of Neuroscience And Synthetic Biological Intelligence With Post-Doctoral Scientist Alon Loeffler

Clever Women Co.

Play Episode Listen Later Aug 26, 2024 94:21


Alon Loeffler is a Postdoctoral Scientist at Cortical Labs in Melbourne. Cortical Labs are a biological computing startup putting live neurons into chips to revolutionise computing.  This in part means the ability to teach real human brain cells to do things, outside the person's body. The company works with real neurons, studying their electrical activity and even teaching them to play Pong (you read that right!).  Entering the field of neuroscience came after a significant turning point in Alon's life at the age of 16. He developed an autoimmune disease called Transverse Myelitis, which left him paralysed in his hands and legs. Despite the challenges of dealing with recovery and rehabilitation as a teenager, it shifted his priorities from parties to taking care of his health and understanding why this happened. His first project in this field led him to pursue a PhD in nanotechnology at the University of Sydney. He worked on neuromorphic materials that mimic the behaviour of real neurons. This application can be used to process dynamic, noisy and real-time data that AI can't deal with currently.  Alon's work at the company involves data science, algorithm development and software development - a role he describes as his dream job: “It's fascinating work with huge potential, like testing neurological diseases and possibly replacing animal testing.”   In this episode, we chat about:  What is a synthetic biological intelligence postdoctoral scientist?  What are neurons? Neurodegenerative diseases Electrophysiological reward and punishment  What is Cortical Labs? What is synthetic biological intelligence?  Why are humans so much smarter than AI with less data points? The function of neurons Consciousness Neuromorphics Autoimmune diseases – Follow The Founder Tapes on Instagram, TikTok and LinkedIn Subscribe to The Founder Tapes on YouTube!  – Find Alon Loeffler on LinkedIn  Find Cortical Labs on LinkedIn or visit their website – Music License Number - QK7rZS

MS Living Well: Key Info from Multiple Sclerosis Experts

The spinal cord serves as the main communication highway between the brain and body. Did you know that 80% of people with multiple sclerosis have spinal cord lesions on MRI? These lesions can disrupt specific neural pathways, leading to common MS symptoms like numbness, weakness, impaired coordination, balance issues, bladder problems, constipation, and sexual dysfunction. For instance, damage to the corticospinal tract on one side of the spinal cord can weaken an arm or leg. A remarkable autopsy study revealed that nearly 90% of people with MS still had active inflammation in the spinal cord. This finding brings new hope for potential treatments, even for older and progressive MS patients. Advances in imaging technology, including more powerful MRI scanners (3 Tesla and higher), are enhancing our ability to see inside the spinal cord, which is as thin as a pinky finger. Improved spinal cord imaging is driving the development of new therapies in clinical trials and helping identify those at risk for worsening disability, ultimately guiding better treatment decisions. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Gabriele De Luca MD DPhil, Professor of Clinical Neurology and Experimental Neuropathology, University of Oxford, United Kingdom Bruce Cree MD PhD, Professor of Neurology at University of California, San Francisco School of Medicine

Conversations with a Chiropractor
Episode 12: Navigating Long COVID Complications: Deb Jensen's Story | Conversations With a Chiropractor

Conversations with a Chiropractor

Play Episode Listen Later Aug 7, 2024 34:01 Transcription Available


Episode 12: Navigating Long COVID Complications: Deb Jensen's Story | Conversations With a Chiropractor Welcome to another powerful episode of "Conversations With a Chiropractor." I'm Dr. Stephanie Wautier, and today, I'm joined by Deb Jensen, a remarkable woman whose journey through the complications of long COVID is truly inspiring. In this episode, Deb shares her harrowing experience with transverse myelitis, the impact of the condition on her life, and the unwavering faith that guided her through challenging times. Her story is a testament to resilience and the importance of a strong support system.

The Debbie Nigro Show
Aimee Hofmann paralyzed at 30 by a horrible disease, uses her wheelchair and paintbrushes to create amazing works of art.

The Debbie Nigro Show

Play Episode Listen Later May 29, 2024 14:56


Needless to say Aimee Hofmann is an INSPIRATION to many!   At 30, she suffered from the neurological condition, Transverse Myelitis, an inflammation in the spinal cord that caused complete paralysis from level T10 of the spine. After learning she would never walk again, art gave her peace during the difficult stages of loss, grief, self-reflection, and re-discovery. Art helped her emotionally heal, as well as find joy again.   Throughout the years that followed, while facing a new life with a disability, Aimee created a number of collections. Her works featured landscapes, abstract florals and swirl patterns, which have continued to evolve into deeper abstract work.   Her unique abstract art has inspired many with its vibrancy and depth, symbolizing the resilience and strength found in the journey of recovery.   Aimee is being honored on June 6th by Burke Rehabilitation Hospital with the Burke Award, their highest honor. This year's theme is the "Healing Power of the Arts," which highlights the transformative impact of the arts in rehabilitation and recovery. Burke is a nationally renowned rehabilitation hospital located in White Plains NY and Aimee's impactful artwork adorns the walls throughout Burke Rehabilitation's buildings.   Aimee joined me to share her pride in how her unexpected journey brought her to this moment and how art contributes to the rehabilitation and recovery process for patients. I asked Aimee to talk about what she does every day and how she does it.  Her most recent collections she said, express a newfound freedom that embraces the beauty of imperfections, renewal/rebirth and nostalgia and the symbolism of one's unique life journey.   “After I became paralyzed throughout the years that followed, I learned so many life lessons. I did a lot of self-reflection and self-rediscovery work. One of the things was that I learned to let go of perfectionism, and it's something that I struggled with throughout my whole life. And so, my latest work features, for example, paint in diverse textures and various consistencies, which I liberally pour and splatter all over the canvas. And this kind of embracing the beauty of imperfections, allowing the paint organically to react instead of focusing on being perfect and that is a complete reflection of my personal journey. " "And so, acquiring a disability has also helped me discover this newfound courage that was born from the realization that there is nothing to fear because I realized that the future will always be uncertain for everybody no matter what. So, this epiphany has allowed me to relinquish control over outcomes, allowing my intuition to guide the creative process instead of focusing so much on the final results, if that makes sense.”   Everything Aimee creates makes total sense. In addition to individual collectors and Burke Rehabilitation, Aimee Hofmann's work is part of corporate collections at Amazon, JPMorgan Chase & Co., HSBC, PricewaterhouseCoopers, Intuit, State Street Bank, Ipsen, Brown Advisory and Vigil Neuroscience. She has also shown at local and regional arts centers and has been a guest speaker at the Harvard Business School.   Aimee Hofmann lives with her husband and two children in Westchester County NY. She is a two-time hand-cyclist marathoner, avid swimmer, fundraiser, and guest speaker. As disabilities advocate her goal is to continue to create awareness about inclusion and fair representation for people with disabilities.    ********** About 'The Burke Award': Given by Burke Rehabilitation, it is conferred upon an individual or group who has made significant contributions to the field of rehabilitation, either through personal achievements, the development of research or the establishment of programs and facilities to assist individuals with disabilities. It recognizes strength and courage in overcoming the challenge of a disability or a significant contribution to the understanding of physical disability. It remains the highest honor bestowed by the Board of Trustees of Burke Rehabilitation Hospital.   The Burke Award Dinner is Burke's premier fundraiser, with proceeds supporting Burke's outstanding rehabilitative care services and the Healing Power of the Arts fund.   Your generous support of the 2024 Burke Award being held on June 6th will make a difference in the lives of the thousands of patients Burke serves each year.     Enjoy being inspired to learn how art heals by the fabulous Aimee Hofmann in this podcast of our live conversation on The Debbie Nigro Show. 

The ParaUnity Podcast
Episode 90 - Adam Glider Bonnett

The ParaUnity Podcast

Play Episode Listen Later Jan 8, 2024 64:07


Tonight, we welcome Adam “Glider” Bonnett to the show. Whitney met Adam at the place where she has met so many amazing people: St. Albans Sanatorium (which I think should become its own episode). Adam is a motivational speaker and paranormal investigator, calling himself the “rolling trigger object.” He uses a wheelchair due to being paralyzed from a condition called Transverse Myelitis. He's also created a character called “Glider,” who is a ghost using a wheelchair. We'll have to ask Adam more about “Glider” when he joins us.Website: https://the-glider.com/Facebook: https://www.facebook.com/bonnett3Instagram: https://www.instagram.com/wvgliderCheck out our website: https://paraunitypodcast.wixsite.com/paraunityYou can find us on Instagram and FacebookInstagram: https://www.instagram.com/paraunitypodcastFacebook: https://www.facebook.com/paraunitypodcastThanks again to all of you for tuning in. If you listen to us on apple podcasts please remember to leave us 5 stars or a review. It helps us to get the word out about the show and we want to hear your feedback to help make the show better. If you are an android listener you can follow us on Spotify, Pandora, I heart radio, Google podcasts, so you never miss an episode. Remember if you like the show, tell a friend.Music: "Music Box" by The Underscore Orkestra"Check Your Math" by DJ Spooky

MS Living Well: Key Info from Multiple Sclerosis Experts
Recipe for Resilience: The Blind Cook and NMOSD

MS Living Well: Key Info from Multiple Sclerosis Experts

Play Episode Listen Later Dec 19, 2023 38:12


Christine Ha, an award-winning blind chef and restauranteur, shares her experience grappling with neuromyelitis optica spectrum disorder (NMOSD). Facing relapses with the inability to walk and feed herself that challenged her independence, she leaned on the support from family and friends. As she lost her sight due to optic neuritis in both eyes, Ms. Ha had to embark on a journey of rediscovery in the kitchen, starting with the fundamentals. Winning MasterChef Season 3 marked a turning point, propelling her culinary career forward despite the obstacles posed by her disability.  NMOSD is an autoimmune disease in which an antibody attacks water channels on astrocyte cells in the optic nerves, spinal cord and sometimes the brain. Attacks or relapses can be devastating and incomplete recovery from attacks is typical. Like Ms. Ha, some people living with the condition can be misdiagnosed with multiple sclerosis. A blood test for the aquaporin-4 antibody is key to getting diagnosed correctly early. Since 2019, highly effective treatment options have been FDA-approved that reduce relapses by 77-94%. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Christine Ha, "The Blind Cook".  Her first cookbook, Recipes from My Home Kitchen, was a New York Times best-seller. Ms. Ha's first restaurant in Houston, The Blind Goat, was named a semi-finalist for 2020 Best New Restaurant in America by the James Beard Foundation. She was also named a James Beard finalist for Best Chef in Texas in 2022. Michael Levy MD PhD, Associate Professor at Harvard Medical School and Director of the Neuroimmunology Clinic and Research Laboratory    

ListenABLE
Alison Connoley (Cerebral Palsy & Transverse Myelitis) | #91

ListenABLE

Play Episode Listen Later Oct 29, 2023 26:46


Alison's life changed overnight when she couldn't feel anything from the waist down. After being diagnosed with a 'bad cold', her symptoms became worst, soon discovering she had Transverse Myelitis, 'an inflammatory disease of the Spinal Cord'. With Alison now to become a full time Wheelchair user, it presented an opportunity to reflect on her career as a nurse and broaden her perspective of what support could look like in the in not only the medical community within her own town but within her own family. Her email to ListenABLE: “I would love to share my story on ListenABLE so that others can see that life doesn't end just because you have a disability and really, life gets better because of it. I am a better wife, mum, friend and employee because of my disability”. Overcoming the previous stigma and representation of what it means to be disabled, Alison speaks about her current road to acceptance of her own disability and how her attitude has created a ripple effect to not only the people she loves most but her own community. Check out Alison's website: My Choice Group: https://mychoicegroup.com.au/ Check out this episode on our YouTube: https://youtu.be/pYMfK5M-o1A Join the 10,000+ legends on Instagram: @ListenABLE_ Podcast https://www.instagram.com/listenable_podcast/ Grab our first merch release at our website From Your Pocket https://fromyourpocket.com.au/work/listenable/merch  See omnystudio.com/listener for privacy information.

Life After Paralysis with Tiffiny Carlson
Episode 52: ShelbyLynn Quintana's Transverse Myelitis Journey

Life After Paralysis with Tiffiny Carlson

Play Episode Listen Later Oct 24, 2023 28:04


In episode #52, we spoke with the newly paralyzed ShelbyLynn Quintana, injured from transverse myelitis last year. She shares her experience of being undiagnosed for months until a cause of paralysis was found thanks to sharing her story on Tiktok. Also a published poet, ShelbyLynn sheds light on a cause of paralysis that not enough people are aware of in both the lay and medical fields. She also shares her thoughts on wheelchair fashion and reads one of her poems. - ShelbyLyn on IG: https://www.instagram.com/poetry_on_wheels

The Story Collider
Uncharted: Stories about disability in STEM

The Story Collider

Play Episode Listen Later Aug 25, 2023 29:41


People with disabilities are underrepresented in STEM fields, and all too often, they face isolation and ableism in academia. In this week's episode, two stories from the recently published book Uncharted: How Scientists Navigate Their Own Health, Research, and Experiences of Bias, have been adapted for the podcast. Both of our storytellers showcase how they, as scientists with disabilities, navigate their careers. Part 1: When Skylar Bayer's heart condition sidelines her from doing her dive research, she struggles with not feeling worthy enough as a scientist. This story was originally produced by SoundBites and aired on Maine Public Radio in 2019. Part 2: When Mpho Kgoadi loses feelings in his legs as a child, he worries he won't be able to achieve his dreams. Skylar Bayer is a marine biologist, a storyteller, and a science communicator. She completed her Ph.D. in the secret sex lives of scallops, a subject that landed her on The Colbert Report in 2013. Since then she has dabbled in a diversity of science communication activities, all of which you can read about on her website (skylarbayer.wordpress.com). She's an alum of the D.C.-based Sea Grant Knauss Marine Policy Fellowship program. She is the co-editor with fellow MIT alum, Gabi Serrato Marks, of the book Uncharted: how scientists navigate health, research, and bias. When there isn't a pandemic going on, she also enjoys Brazilian Jiu Jitsu, the gentle art. Follow her on Twitter @drsrbayer. Mpho Kgoadi is a PhD student at the University of the Witwatersrand in South Africa. He has a rare auto-immune disease called Transverse Myelitis and has been using a wheelchair for the past 15 years. He has always been fascinated by the mysteries of the cosmos, and his research focuses on the effect of dark matter in the early universe. Outside of his research, he is passionate about science outreach and making scientific knowledge accessible to people from diverse backgrounds, he loves coding and have a deep passion for tech. In his free time, he enjoys stargazing, reading science fiction novels, and playing video games. Purchase a copy of Uncharted and read more powerful first-person stories by current and former scientists with disabilities or chronic conditions. Books can be purchased here: uncharted.ck.page Learn more about your ad choices. Visit podcastchoices.com/adchoices

Ask the Expert
1107. Update: Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells into Patients with Transverse Myelitis

Ask the Expert

Play Episode Listen Later May 31, 2023 17:37


Dr. Benjamin Greenberg joined Dr. GG deFiebre of SRNA on our podcast series, “Ask the Expert: Research Edition.” This episode is titled “Update: Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells into Patients with Transverse Myelitis.” Dr. Greenberg discussed the background and status of the study. It is the first of its kind to look at the potential use of stem cells to repair the damage in spinal cords affected by myelitis, inflammation in the spinal cord. He also explained the screening process, enrollment, and next steps of the study.

Dearly Discarded - Unheard Stories of the Pandemic with Jared St. Clair

Danielle Baker was an active RN (Certified Hospice and Palliative Care) for 20 years and loved her job. Within 2.5 weeks after her last shot, she became completely disabled, suffering from severe neurological issues, demyelination of the spine, and getting the diagnosis of transverse myelitis, which her doctor confirmed was due to the Pfizer jab. Since then, Danielle has been unable to work as she has difficulty completing simple tasks such as walking and self-care. However, she has a beautiful light around her as she continues to fight to find joy and happiness. Here's her testimony to the FDA VRBPAC in January: https://rumble.com/v278u5a-heart-wrenching-testimony-danielle-baker-presentation-at-the-fda-vrbpac-mee.html This is her GiveSendGo: https://www.givesendgo.com/G9KZJPlease visit React 19's website for more information on how to help these incredible people.Please text REACT to 50155 to donate via text

The Medbullets Step 2 & 3 Podcast
Neurology | Transverse Myelitis

The Medbullets Step 2 & 3 Podcast

Play Episode Listen Later Apr 13, 2023 9:08


In this episode, we review the high-yield topic of ⁠Transverse Myelitis⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the Neurology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets

ACEP Critical Decisions in Emergency Medicine
March 2023: Transverse Myelitis and Guillain-Barré Syndrome and Traumatic Spinal Cord Injury

ACEP Critical Decisions in Emergency Medicine

Play Episode Listen Later Apr 3, 2023 42:26


In the March episode of Critical Decisions in Emergency Medicine, Drs. Danya Khoujah and Wendy Chang discuss transverse myelitis and Guillain-Barré syndrome as well as traumatic spinal cord injury. As always, you'll hear about the hot topics covered in CDEM's regular features, including pediatric diphenhydramine overdose in Clinical Pediatrics, open Achilles tendon laceration in Critical Cases in Orthopedics and Trauma, mallet finger splint in The Critical Procedure, management of acute ischemic stroke in the LLSA Literature Review, and a brain lesion in a pediatric patient in The Critical Image.

MedLink Neurology Podcast
BrainWaves #97 What is so idiopathic about transverse myelitis?

MedLink Neurology Podcast

Play Episode Listen Later Feb 28, 2023 24:09


MedLink Neurology Podcast is delighted to feature selected episodes from BrainWaves, courtesy of James E Siegler MD, its originator and host. BrainWaves is an academic audio podcast whose mission is to educate medical providers through clinical cases and topical reviews in neurology, medicine, and the humanities, and episodes originally aired from 2016 to 2021. Originally released: February 15, 2018 We've abused the term "idiopathic." Not all clinical conditions have to have an unclear cause. More and more, we are finding out the answers. This week, using transverse myelitis as an example, Dr. Clyde Markowitz shares his experience in working up unknown etiologies of spinal cord inflammation. Produced by James E Siegler. Music by Quantum Jazz, Rui, and Steve Combs. Voiceover by Erika Mejia. BrainWaves' podcasts and online content are intended for medical education only and should not be used for clinical decision-making. REFERENCES Bevan CJ, Cree BA. Fulminant demyelinating diseases of the central nervous system. Semin Neurol 2015;35(6):656-66. PMID 26595866 Cobo Calvo A, Mañé Martínez MA, Alentorn-Palau A, Bruna Escuer J, Romero Pinel L, Martínez-Yélamos S. Idiopathic acute transverse myelitis: outcome and conversion to multiple sclerosis in a large series. BMC Neurol 2013;13:135. PMID 24090445 Greenberg BM, Frohman EM. Immune-mediated myelopathies. Continuum (Minneap Minn) 2015;21(1 Spinal Cord Disorders):121-31. PMID 25651221 Jacob A, Weinshenker BG. An approach to the diagnosis of acute transverse myelitis. Semin Neurol 2008;28(1):105-20. PMID 18256991 Kimbrough DJ, Mealy MA, Simpson A, Levy M. Predictors of recurrence following an initial episode of transverse myelitis. Neurol Neuroimmunol Neuroinflamm 2014;1(1):e4. PMID 25340060 Zalewski NL, Flanagan EP, Keegan BM. Evaluation of idiopathic transverse myelitis revealing specific myelopathy diagnoses. Neurology 2018;90(2):e96-e102. PMID 29247071  We believe that the principles expressed or implied in the podcast remain valid, but certain details may be superseded by evolving knowledge since the episode's original release date. 

Bucket List Careers
Artist Aimee Hofmann's Uplifting Pivot To Abstract Painting After Paralysis

Bucket List Careers

Play Episode Listen Later Dec 1, 2022 18:21


Aimee Hofmann is an abstract artist who has been painting for 16 years. Her journey to finding her professional purpose and life's work is one that is inspiring and filled with twists and turns. In '98, Hofmann earned a BS degree from the Stern School of Business at New York University. After graduating, she landed positions in marketing and public relations, but did not feel fulfilled. In search for an artistic outlet, she explored creative industries, i.e., make-up artistry and acting.  Suddenly, in 2006, she suffered from the neurological condition, Transverse Myelitis, which resulted in permanent paralysis. The hospital, where she was a patient, offered a therapeutic art program which prompted Hofmann to start painting in her hospital bed during her stay. After learning she would never walk again, it was art that, ultimately, gave her peace during the difficult stages of loss, grief, self-reflection and self-discovery. Throughout the years that followed, while facing life with a disability, she created a number of collections.  Aimee considers herself mainly a self-taught artist and her work has been exhibited at Carriage Barn Arts Center, Jamestown Arts Center, Blue Door Arts Center and Rye Arts Center.

Bucket List Careers
Artist Aimee Hofmann's Uplifting Pivot To Abstract Painting After Paralysis

Bucket List Careers

Play Episode Listen Later Dec 1, 2022 18:21


Aimee Hofmann is an abstract artist who has been painting for 16 years. Her journey to finding her professional purpose and life's work is one that is inspiring and filled with twists and turns. In '98, Hofmann earned a BS degree from the Stern School of Business at New York University. After graduating, she landed positions in marketing and public relations, but did not feel fulfilled. In search for an artistic outlet, she explored creative industries, i.e., make-up artistry and acting.  Suddenly, in 2006, she suffered from the neurological condition, Transverse Myelitis, which resulted in permanent paralysis. The hospital, where she was a patient, offered a therapeutic art program which prompted Hofmann to start painting in her hospital bed during her stay. After learning she would never walk again, it was art that, ultimately, gave her peace during the difficult stages of loss, grief, self-reflection and self-discovery. Throughout the years that followed, while facing life with a disability, she created a number of collections.  Aimee considers herself mainly a self-taught artist and her work has been exhibited at Carriage Barn Arts Center, Jamestown Arts Center, Blue Door Arts Center and Rye Arts Center.

The Cabral Concept
2417: Sodium & Dry Skin, BCAAs, Weight & Aromatase Inhibitor, Keloid Scars, Virus & Nerve Pain, Encopresis & MiraLAX (HouseCall)

The Cabral Concept

Play Episode Listen Later Sep 18, 2022 24:38


Thank you for joining us for our 2nd Cabral HouseCall of the weekend! I'm looking forward to sharing with you some of our community's questions that have come in over the past few weeks…   Anonymous: Hi Dr Cabral, thank you for all you do and for your amazing podcasts, you are a wealth of knowledge and I trust your word before anyone else!! My question is about sodium. I get really dry skin mostly on my face when I have a very small amount of salt. Is this a gut issue like candida or yeast overgrowth, why would this be happening so much later in life? I'm a male, 43 years of age and I'm in pretty good health overall. I never had an issue with salt when I was younger, but now my nose, cheeks and sometimes hands get really really dry. I predominantly have salt only on the weekends, and whether its celtic or himalayan and maybe a cheat meal from a restaurant, it just seems to overloaded my body. I always keep up with my water throughout the day so I am hydrated as well. Any help with this is greatly appreciated, keep up the fantastic work!!!   Anonymous: Hi Dr. Cabral thank you for all you do and for putting out these podcasts daily. They're highly informative and I'm learning new things everyday!! My question is about bcaa's. I know you've talked about them before but I was just wondering if when working out or lifting weights, a person can have 3-5 grams in water during the session to keep the body anabolic and not tap into muscle as a fuel source? Ive heard that the leucine in bcaa's, if your having it every 3-4 hours throughout the day (especially if your not having any fish or meat with your meal) will basically flip an internal switch to keep you in a anabolic state so you don't slip into catabolism and you can keep building muscle. I know we are supposed to have half our body weight in protein a day, so would this go against that and up your protein intake too much? Thank you again for all you do!   Kelsey: I'm wondering the best approach to managing weight gain and inflammation and overall feeling better while taking an aromatase inhibitor.   Luciana: Dr. Cabral, I have a severe case of keloid scars. I have done multiple surgeries to remove them, but it keeps coming back. My last surgery was 2 years ago to remove two very large scars from my back and shoulder. After the surgery we followed up with radiation, compression, and steroid shots. I've been battling this since I was in 4th grade and have tried everything modern medicine has to offer. Yesterday I went to my doctor to get more steroid shots and he said I can't get them anymore because the skin is too thin. The scar is getting wider because of the tension in the shoulder. I've asked Naturopathic doctors before, but they didn't know how to help me. I've been following your work for the last few months and I'm getting ready to start the 21 day detox this weekend. Modern medicine claims that keloid scars are genetic, even though I'm the only one in my family who has it. I've always asked why I've only start developing them after age 10. Have you threated any patients with the same condition? What would your recommendation be? Should I setup an online consultation with you so we can further discuss the matter? Thank you for your time, Luciana   Alexis: Hello Dr Cabral, I'm in IHP2 and grateful for all you do. I was on the mend from Covid and 2 days later I woke with full body severe nerve pain. Then full body numbness & no longer able to walk. Diagnosed as Transverse Myelitis and positive for HHV6 and MOG. As a child I had JRA and EBV (then was fine!) and later had issues arise as an adult like: shingles, rashes, vertigo, food sensitivities. I worked with someone to get rid of Cdiff and Giardia. I've sealed and healed my gut a ton. But I must still have a higher viral load and/or other remaining issues, and this current virus attacked my nerves? What is the root?! I believe I can heal and I will! Any guidance on steps… greatly appreciated in this time of need, thank you   Tonya: Hello. My son has encopresis. He was diagnosed when he was 3 and now he is 10. For years the doctors said Miralax was the answer. Last year I decided enough was enough and quit the miralax. I hired a nutritionist and we did a food sensitivities test. Turns out he is allergic to dairy, gluten, soy, egg whites, peanuts, & tilapia. I searched your podcasts and found 1 other where you also suggested other testing so next we will do the stool test and so on. However, Ive also heard you mention a 5 day intestinal cleanse. And I was wondering if we could do this? Would this also work as a "Miralax"? Currently we are doing aloe vera juice and magnesium as well as a major diet change (that has been going great)! Thank you so much for everything!!   Thank you for tuning into this weekend's Cabral HouseCalls and be sure to check back tomorrow for our Mindset & Motivation Monday show to get your week started off right! - - - Show Notes and Resources: StephenCabral.com/2417 - - - Get a FREE Copy of Dr. Cabral's Book: The Rain Barrel Effect - - - Join the Community & Get Your Questions Answered: CabralSupportGroup.com - - - Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - Get Your Question Answered On An Upcoming HouseCall: StephenCabral.com/askcabral - - - Would You Take 30 Seconds To Rate & Review The Cabral Concept? The best way to help me spread our mission of true natural health is to pass on the good word, and I read and appreciate every review!

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Become Your Vision
Ep. 121 At The Age of 10, Dana Mathewson Lost Her Ability To Walk, But That Hasn't Stopped Her. Dana is a 2x Paralympian and Inspires Others To Chase Their Dreams

Become Your Vision

Play Episode Listen Later Aug 17, 2022 64:37


Dana Mathewson is a 2x Paralympian, Tokyo 2020 Paralympic Quarterfinalist, and a Wimbledon Doubles Champion. At the age of 10, Dana was diagnosed with Transverse Myelitis, and at age 13 she was introduced to wheelchair tennis. Today, she lives and trains full-time at the USTA National Campus. She plans on representing Team USA at Paris 2024 and beyond. Stay Connected With Lauren On Instagram: @lauren.kubat Learn More About Moosely On Instagram: @mooselycereal Learn More About Lauren:https://www.laurenkubat.com/ Learn More About Dana: @dana.mathewson In this episode we discuss: The day when Dana's life changed forever What it's like training for the Paralympics  What Dana's experience was like in Rio and Tokyo  How Paralympians are treated compared to how Olympians are treated What Dana does to stay focused  

The Gritty Nurse Podcast
Transverse Myelitis, Nursing and Advocacy: How Andrea Dalzell became The Seated Nurse

The Gritty Nurse Podcast

Play Episode Listen Later Aug 11, 2022 38:34


There is nothing, and we mean NOTHING, that Andrea Dalzell cannot do. In this episode, we talk to a registered nurse, healthcare advocate, disability rights influencer, speaker and survivor, Andrea Dalzell. She is known as The Seated Nurse and was the first nurse in a wheelchair in New York. We discuss her path into nursing school, advocacy and passion for amplifying folks with disabilities everywhere, especially in nursing.  Andrea Dalzell is a registered nurse, healthcare advocate, disability rights influencer, speaker and most importantly, a survivor. At the age of five, Andrea was diagnosed with transverse myelitis, an inflammation of the spinal cord that causes pain, muscle weakness and paralysis, and she was using a wheelchair full-time by twelve years old. Inspired by her experiences with nurses, she received her nursing degree from the City University of New York, College of Staten Island. Andrea became the first registered nurse in a wheelchair in the state of New York, and she devotes her career to helping others with disabilities live healthier lives whether seated or Able-bodied. Andrea was crowned Ms. Wheelchair New York 2015, and utilized her title and platform: "Life, Liberty, and the Pursuit of Access," to promote her message and belief that people with disabilities can live a fulfilling life. As an advocate and activist, she has won national recognition over the years, including being named New Mobilitiy's Person of the Year (2021) and the inaugural Craig H. Neilsen Visionary Prize Winner 2020. She has also been featured in Unite Spinal, HomeCare Magazine, Apple's iWatch campaign, Yahoo, and Forbes. https://www.theseatednurse.com https://linktr.ee/TheSeatedNurse https://www.instagram.com/theseatednurse/ https://twitter.com/theseatednurse @theseatednurse    

Dad to Dad  Podcast
Dad To Dad 211 - University Of Illinois Has Been a Leader In Adaptive Athletics. Meet Alums: Adam Bleakney, Amanda McGrory & Brian Siemann

Dad to Dad Podcast

Play Episode Listen Later Jul 22, 2022 74:04


This week David Hirsch talks with fellow Illini Adam Bleakney, head coach of the wheelchair track program, which is part of the Division Of Disability Resources & Educational Services in the College of Applied Health Sciences at the University of Illinois at Urbana-Champaign. We also meet: Amanda McGrory and Brian Siemann, two University of Illinois graduates who were part of the wheelchair track team and who have both competed in numerous international Paralympic events. You'll learn about their backstories, what brought them to the world of adaptive athletics at UofI, as well as how their university experience has allowed them to prosper, find meaningful employment, to compete at the highest levels internationally and to see the world. It's an amazing trio of stories that you'll hear on this Special Fathers Network Dad to Dad podcast. University of Illinois Adaptive Athletics Programs – https://www.disability.illinois.edu LinkedIn –Adam - https://www.linkedin.com/in/adam-bleakney-4ba61421/ Amanda - https://www.linkedin.com/in/amanda-mcgrory/ Email Addresses – Adam - bleakney@illinois.edu Amanda - mcgrory.amanda@gmail.com Brian - siemann1@illinois.edu Transverse Myelitis – https://rarediseases.info.nih.gov/diseases/7796/transverse-myelitisSpecial Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations. Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA Please support the SFN. Click here to donate: https://21stcenturydads.org/donate/

The Landscape
Netta Ganor - Mouth Painting Artist, Mother, Wife and IT Professional

The Landscape

Play Episode Listen Later Jul 17, 2022 50:20


Netta Ganor is an extremely gifted artist, who speaks about being diagnosed with Transverse Myelitis at C4-C5 at the age of 15, which left most of her body paralyzed from the shoulders down. She also speaks about being a mother, wife, IT professional and much more. It's an interview you do not want to miss! Netta's Links:Main Website with links to her books: HereLink to Netta's IG page: HereThe Mouth and Foot Painting Artists Association (MFPA): HereLinks for The Landscape PagesLink to The Landscape FB PageLink to The Landscape Instagram PageLink to sign up News LetterLink to The Landscape LinkedIn

Healing Hearts: Empowering Pediatric Critical Care Providers
Transport Tidbits: Transverse Myelitis

Healing Hearts: Empowering Pediatric Critical Care Providers

Play Episode Listen Later Jun 1, 2022 8:46


Transport Tidbits: Transverse Myelitis by Children's Hospital & Medical Center

Ask the Expert
1002. The Future of Diagnosing Transverse Myelitis

Ask the Expert

Play Episode Listen Later Feb 21, 2022 58:52


For this episode of our Ask the Expert podcast series, "The Future of Diagnosing Transverse Myelitis," Dr. GG deFiebre of SRNA was joined by Drs. Kyle Blackburn, Stacey Clardy, Eoin P. Flanagan, Benjamin Greenberg, Michael Levy, and Carlos Pardo-Villamizar. Dr. Carlos Pardo-Villamizar began by explaining the history of transverse myelitis. The experts then talked about criteria for TM published in 2002 and how the diagnostic process has changed in the past 20 years. They discussed the terminology of TM, how vascular causes of myelopathies change our understanding of diagnosing TM, and changes they foresee to the TM diagnostic criteria and process. Finally, they answered questions from the audience about potential research for treatments or a cure and COVID-19 vaccines.

Ask the Expert
1001. Study of Transverse Myelitis in Veterans Health Administration Records

Ask the Expert

Play Episode Listen Later Feb 14, 2022 27:58


GG deFiebre of SRNA is joined by Drs. Jonathan Galli, Michael Sweeney, and Justin Abbatemarco for an Ask the Expert: Research Edition podcast on the "Study of Transverse Myelitis in Veterans Health Administration Records." The experts begin by explaining the purpose of this research. They also talk about methods they used to conduct this research and the inclusion and exclusion criteria. The major findings are described, as well as how these compare to previous studies. Finally, the experts discuss what this means for those with TM, the future of diagnosing and treating TM, and ways in which physicians and medical experts can be educated in regard to these issues.

Where Mission and Ministry Meet
Episode 5 - Vahen King - Going Farther

Where Mission and Ministry Meet

Play Episode Listen Later Jan 24, 2022 37:47


Vahen King is an author, motivational speaker and ordained minister. However, Vahen describes herself as "just an ordinary girl" loving life and seizing every opportunity to empower and inspire those around her! At the age of 23, one week after her engagement to the man of her dreams, Vahen developed Transverse Myelitis, a virus that left her physically disabled and dependent on the use of a wheelchair. Although Vahen portrayed confidence as she was trying to cope as a person with a disability, she was facing feelings of self-doubt fear and exclusion. Vahen reached a point when she realized she had a choice to make, either be paralyzed by fears and insecurities, or push forward. Vahen pushed forward to pursue many exciting opportunities. Most recently Vahen founded her organization  "Going Farther" which is a not for profit organization fueled with the vision to: Ignite hearts with hope, Empower the wounded and Equip the willing. At Going Farther, they know life isn't easy and that many people are facing impossible challenges and paralyzing fear keeps them from moving forward. They understand that in order to take that first step, people need encouragement and support. They want to empower individuals to take that first step towards freedom. So, whether you need hope, inspiration, resources, or connections…Going Farther is there to help. Resources:Links-https://goingfarther.org/https://goingfarther.thinkific.com/courses/contagious-courage-introhttps://goingfarther.org/vahenking/#book https://www.youtube.com/watch?v=t9Rcp7CbL20 https://www.youtube.com/watch?v=0mRVO4uyZYI&t=3s https://www.youtube.com/watch?v=yKt4x6nZzHcSocial-https://www.facebook.com/GoingFarther.org/https://twitter.com/vahenking https://www.instagram.com/vahenking/https://www.youtube.com/channel/UC3mNyBHs07xoridFGYusKeQ https://www.linkedin.com/in/vahen-king-01777264/ Email-vahenking@goingfarther.org vahenking@gmail.com

Last Letters
THE ROCKSTAR

Last Letters

Play Episode Listen Later Nov 23, 2021 67:29


This weeks episode features an amazing Human, Husband, Father, and Friend DON WINSPEAR who left this earth for his home in heaven September 17, 2021.Don loved his wife (Ellen), sons (Frank & Ryan), and Green Egg Cooking. Don sits down with host Jeremy Lock to discuss Family, Fatherhood, Transverse Myelitis and not realizing he is "THE ROCKSTAR" Last Letters Website

Words Women and Wisdom Show with Yvonne Silver
Words Women and Wisdom Show, November 9, 2021

Words Women and Wisdom Show with Yvonne Silver

Play Episode Listen Later Nov 10, 2021 59:11


Guest, Vahen King, Diagnosed with Transverse Myelitis, theologian, Life Coach Vahen King is a graduate of Theological Studies from Masters College & Seminary, a credentialed Licensed Minister with the PAOC, and a Life Coach. Diagnosed with Transverse Myelitis, a condition that left her physically disabled and dependent on the use of a wheelchair. Vahen has adapted to her life and surroundings as a Person with a Disability and views her disability as an advantage.

Hot Seat With Cognizant Clay
Episode 14 - Alex Walls

Hot Seat With Cognizant Clay

Play Episode Listen Later Nov 9, 2021 37:26


I had the pleasure of chatting with Alex Walls. He is paralyzed due to Transverse Myelitis, a virus he contracted as a baby. Alex is a gamer who plays under the name DisabledGuyPlays. He is a data analyst and also plays wheelchair rugby.

Together We've Got This
Louise and Annie talk to World, European & Two Time Paralympic Rowing Champion Lauren Rowles. It's an open and honest conversation around mental health and overcoming adversity after being paralysed at the age of 13 to becoming Paralympic Champion

Together We've Got This

Play Episode Listen Later Oct 26, 2021 70:22


In the fourth episode of season four of the Her Spirit podcast  Louise Minchin and BBC Triathlon presenter Annie Emmerson talk to World, European & Two Time Paralympic Rowing Champion Lauren Rowles.Lauren's remarkable journey began in 2012 at the age of 13 when she woke up one morning paralysed from the waist down. From there She spent the following eight months in hospitals and rehabilitation units trying to regain the use of her legs. Despite being left physically impaired from Transverse Myelitis, Lauren was determined to make it as an Olympic athlete she had dreamed of as a young girl.Lauren began her career as an elite athlete aged just 14 after she was inspired by the London 2012 Paralympic Games. She quickly found a talent in wheelchair track racing and she soon represented Great Britain on the international stage, including the Commonwealth Games and Junior World Championships. Lauren transitioned from Athletics to Rowing in 2015 after being scouted by the British Rowing Team and has gone from strength to strength ever since. Five months after she took her first stroke, Lauren won a silver medal at the Senior World Rowing Championships and qualified her boat for the 2016 Paralympic Games in Rio the following year.Lauren made her mark on the global sporting stage after winning a Paralympic gold medal at the Rio 2016 Games at the age of just 18. Subsequently, Lauren was appointed a Member of the Order of the British Empire (MBE) in the 2016 New Year's Honours List for her services to Rowing and has been nominated for several prestigious awards, including the BBC's Young Sports Personality of the Year.Despite the challenges of near career ending injuries and a global pandemic, Lauren has claimed both the World and European titles. Most recently she has returned from the Tokyo as Two Time Paralympic Champion, defending her 2016 title over a new race distance. Looking forward, Lauren hopes to continue building her legacy in sport and changing perceptions around disability and the LGBT community.Her Spirit http://www.herspirit.co.uk supports women of all shapes to sizes to achieve goals you never thought possible and have your #BestYearYet.    Come and join us for this years Winter Swim Challenge https://herspirit.co.uk/programmes/winter-swim-challenge/ it starts on the 31st October 2021 - 27th March 2022.These podcasts have been made possible through the support of Cotswold Outdoor. Cotswold Outdoor in-store experts will help customers make the right choice in the kit they buy, ensuring it will be the right fit and fit for purpose, and will last for many adventures. They also help customers care for and repair their kit with there Repair & Care and Footwear Protection services, to keep well-loved kit performing for longer. And when that kit finally comes to the end of its life, customers can use the Cotswold Outdoor Recycle My Gear service to keep their kit out of landfill. Just to https://www.cotswoldoutdoor.com

R.O.G. Return on Generosity
54. Victoria Arlen - Accessible Voices

R.O.G. Return on Generosity

Play Episode Listen Later Oct 19, 2021 29:58


54. Victoria Arlen - Accessible Voices “What am I doing? How do I do this? How do I get out of it? I think it's staying rooted in your empathy, love, joy, and gratitude, and sprinkling your faith amongst it all. I think those are big things...taking yourself out of the ego and being like, What do I want to give to this world? Because we only have a limited time here. So leave your impact, because we're all able to leave an impact here.” Victoria Arlen   Guest Info: Victoria Arlen's life drastically changed in 2006 at the tender age of eleven when she developed two rare conditions known as Transverse Myelitis and Acute Disseminated Encephalomyelitis. This was an incredibly rare scenario and Victoria quickly lost the ability to speak, eat, walk and move. She slipped into a vegetative state in which doctors had written her off as a lost cause. Victoria spent nearly four years “locked” inside her own body completely aware of what was going on just unable to move or communicate. Doctors believed there was little hope of survival and recovery was unlikely. Victoria, however was not ready to give up. In 2010 after almost four years she began the nearly impossible fight back to life. Learning how to speak, eat and move all over again. Victoria went on to exceedingly defy the odds and not only recovered but has since become an accomplished Motivational Speaker, Television Host and Swimmer. Her swimming resume includes three Silvers and a Gold medal from the London 2012 Paralympic Games as well as multiple World, American and Pan American Records.  In April 2015, Victoria made the transition from professional athlete to sportscaster and joined ESPN as one of the youngest on air talents hired by the company and reports and hosts across all platforms. In the Spring of 2016 Victoria defied yet another odd and after spending nearly a decade in a wheelchair paralyzed from the waist down was able to learn how take one step after another and eventually not only did she learn how to walk but within a year and a half in the Fall of 2017 she learned to dance as a contestant on Season 25 of Dancing with the Stars. Victoria and her dance partner Val Chmerkovskiy quickly became fan favorites.  Victoria is also carrying out her dream of helping others, serving as the Founder and Co-Chair of Victoria's Victory Foundation, a nonprofit that assists those with mobility challenges to achieve their own personal victory.  Victoria's book titled Locked In hit stores worldwide in August of 2018 and in April of 2018 ESPN Films debuted a 30 for 30 titled “Locked In” based on Victoria's story at the Tribeca Film Festival. Victoria was a contributing producer for the film. Victoria became the face of Jockey in May of 2018 and debuted her signature clothing line Jockey by Victoria Arlen in September of 2019.  In July of 2019 Victoria was announced as the new host of America Ninja Warrior jr, Season 2 which aired in February 2020.  In the last year Victoria has branched into more creative spaces in both acting, producing, fashion and hosting with a variety of projects currently in the works. Victoria has become world famous not only for her story and accomplishments but for her message:  “Face It, Embrace It, Defy It, Conquer It“ ™  VictoriaArlen.com   Favorite Quote: “Face it. Embrace it. Defy it. Conquer it.” — Victoria Arlen   R.O.G. Takeaway Tips: Three things for us to model in our own lives:  Gratitude  Attitude  Community Gratitude: Gratitude has been proven to improve our health, wellness, relationships and perspective.  What's something you're taking for granted right now?  Attitude: Attitude determines altitude. Attitude is everything. Charles Swindoll wrote, “Life is 10% what happens to us and 90% what we do about it.” How would you describe – in general – your attitude?  Community: Who's in your community? How do they support you? How do you support them?  Invest in your communities. They are precious gifts for us – and meet the human need to belong.   Resources: VictoriaArlen.com VictoriasVictory.org Locked In - The Will to Survive and the Will to Live by Victoria Arlen Careers at Disney/ ESPN https://jobs.disneycareers.com/espn    Coming Next: Episode 55, we will be joined by Mary Ann Newell and Jaylen Dotson from St. Joseph University's Kinney Center for Autism Education and Support. They will dispel some of the myths about autism and share the truth about the talent and capability of people with autism. Don't miss it!   Credits: Victoria Arlen, Sheep Jam Productions, Host Shannon Cassidy, Bridge Between, Inc.

You Matter!
Episode 76: Victoria Arlen

You Matter!

Play Episode Listen Later Sep 14, 2021 38:08


Victoria Arlen is a television personality for ESPN, as well as an actress, speaker, model, and former American paralympian swimmer. Victoria's life drastically changed in 2006 at the age of eleven when she developed two rare conditions known as Transverse Myelitis and Acute Disseminated Encephalomyelitis. This was an incredibly rare scenario and Victoria quickly lost the ability to speak, eat, walk and move. She slipped into a vegetative state in which doctors had written her off as a lost cause. Victoria spent nearly four years “locked” inside her own body completely aware of what was going on just unable to move or communicate. Doctors believed there was little hope of survival and recovery was unlikely. Victoria, however, was not ready to give up. In 2010 after almost four years, she began the nearly impossible fight back to life. Learning how to speak, eat and move all over again.

Ask the Expert
909. Transverse Myelitis: Symptom Management

Ask the Expert

Play Episode Listen Later Aug 10, 2021 55:06


Krissy Dilger of SRNA was joined by Dr. Ram Narayan and Dr. Elena Grebenciucova for an Ask the Expert podcast entitled, "Transverse Myelitis: Symptom Management." The experts discuss medications and other treatment options for symptoms such as pain, spasticity, fatigue, and more. They talk about the different healthcare providers who form a team to help a person with TM receive comprehensive care. Finally, the experts discuss vaccinations and whether the COVID-19 vaccine is recommended for people with TM.

Sports Saved My Life
Episode 12 - MaryKate Callahan - Para-Triathlete

Sports Saved My Life

Play Episode Listen Later Jul 22, 2021 78:44


MaryKate Callahan – MaryKate is an elite para-triathlete. She grew up in suburban Chicago, and at five months old, she contracted Transverse Myelitis which attacked her spinal cord with a TA-T10 level spinal cord injury, leaving her paraplegic. She has traveled the world competing in the sport of Triathlon, attending three world championships in which she placed in the Top 10. She is also a staunch disability advocate and a graduate of the University of Arizona. You can follow MaryKate's journey at the following social media; Instagram mk.callahanTwitter - @mkcallahan13www.marykatecallahan.comAbout Angel City SportsAngel City Sports provides free, year-round adaptive sport clinics, equipment, and competitive opportunities for kids, adults, and veterans with physical disabilities or visual impairments. Angel City Sports' flagship event, the annual Angel City Games presented by The Hartford, debuted in 2015 and is now the largest multi-sport Paralympic competition in the U.S. for kids, adults, and veterans. Participants include, but are not limited to, individuals with limb differences and amputation, spinal cord injury, quadriplegia, spina bifida, cerebral palsy, multiple sclerosis, blindness or visual impairment, traumatic brain injury, stroke, muscular dystrophy, and dwarfism or short stature. Ultimately, Angel City Sports is working to create a community and sense of belonging for people with physical disabilities, supporting them to reach their full potential and unlock their dreams through its programming in sport, the arts, health and wellness, higher education, career opportunities, and personal development. To learn more, please visit http://www.angelcitysports.org and follow @angelcitysports on Facebook, Instagram, Twitter, Linked-in, and YouTube. 

Designed To Heal
Activism 101 From The Father Of A Vaccine Injured Child (ft. Josh Coleman)

Designed To Heal

Play Episode Listen Later Jul 19, 2021 58:06


In this episode we welcome Joshua Coleman. Josh is the father of a vaccine injured son. After a round of vaccines at 17 months his son became paralyzed from the waist down and was eventually diagnosed with Transverse Myelitis. In this episode Josh shares his belief of how vaccination was responsible and how the public can join the cause of activism on this very important topic. Register for The Informed Family Seminar, August 14, 2021 in Orlando, FL, featuring Del Bigtree, Dr. Terry Harmon and Dr. Cornelia Franz, M.D.: https://bit.ly/3xJmmKO - The Designed To Heal Podcast is intended to provide encouragement for the listener but is for entertainment purposes only and NOT a substitute for proper treatment or to be used in any legal capacity whatsoever. Please seek help from a qualified provider.

Ask the Expert
907. Transverse Myelitis: Diagnosis and Treatment Guidelines

Ask the Expert

Play Episode Listen Later Jun 22, 2021 55:55


SRNA hosted an Ask the Expert podcast entitled, "Transverse Myelitis: Diagnosis and Treatment Guidelines" with medical experts Dr. Ram Narayan and Dr. Elena Grebenciucova. The experts began by explaining what transverse myelitis is, signs and symptoms, and how the diagnosis is made. They discussed acute treatments and how they decide which treatments to use for each patient. Finally, the experts talked about rehabilitation and what someone should do if they experience decompensation.

Navigating Neuropsychology
71| Neuropsych Bite: Pediatric Transverse Myelitis – With Dr. Lana Harder

Navigating Neuropsychology

Play Episode Listen Later May 15, 2021 16:53


Transverse myelitis is a disorder of spinal cord inflammation and demyelination. Although more common in adults, it does occur in children. In the past, people believed that transverse myelitis was not associated with cognitive symptoms, given that it exclusively impacts the spinal cord (not the brain). However, recent evidence suggests that performance on cognitive testing can be negatively impacted in some children with transverse myelitis. To learn more about this condition in children, John and Ryan speak with Lana Harder, Ph.D., ABPP-CN, who is a founding member and current Co-Director of the Children’s Medical Center Pediatric Demyelinating Disease Clinic. Show notes are available at www.NavNeuro.com/71 _________________ If you’d like to support the show, here are a few easy ways: 1) Get APA-approved CE credit for listening to select episodes: www.NavNeuro.com/INS  2) Tell your friends and colleagues about it 3) Subscribe (free) and leave an Apple Podcasts rating/review: www.NavNeuro.com/itunes 4) Contribute to the discussion in the comments section of the website (click the episode link listed above) or on Twitter (@NavNeuro)   Thanks for listening, and join us next time as we continue to navigate the brain and behavior! [Note: This podcast and all linked content is intended for general educational purposes only and does not constitute the practice of psychology or any other professional healthcare advice and services. No professional relationship is formed between hosts and listeners. All content is to be used at listeners’ own risk. Users should always seek appropriate medical and psychological care from their licensed healthcare provider.]

Fraternity Foodie Podcast by Greek University
Bridget Gum: What can Universities do to offer better services for those with physical disabilities?

Fraternity Foodie Podcast by Greek University

Play Episode Listen Later May 5, 2021 45:58


After you listen to this podcast episode, you will learn what Universities can do to offer better services and more appropriate accommodations for students with physical disabilities, and the things that our fraternities and sororities can do to be more attractive to students on campus with physical disabilities. In episode #151​ of the Fraternity Foodie Podcast, we have with us Bridget Gum, a student at Rider University. When Bridget was an infant, she developed a rare autoimmune disorder that attacked her spinal cord and left her paralyzed below the upper chest with partial control over four limbs. It’s a condition that Bridget has learned to work around, prideful of the way she compensates for the physical difficulties. We find out what is Transverse Myelitis, how a family summer camp made entirely for others with this disability became a life changing experience, what it's like being diagnosed with epilepsy, why Rider University was the best choice for Bridget, what was special about Phi Sigma Sigma at Rider, an update on renovations to the Phi Sigma Sigma house at Rider to make it accessible for those with physical disabilities, what Universities can do to offer better services and more appropriate, what fraternities and sororities could do to be more attractive to those with disabilities so they can have the same experiences as an able-bodied person, and what the future looks like for Bridget. Enjoy! Link: https://www.youtube.com/watch?v=kf0Vei_WIWc https://www.youtube.com/watch?v=kf0Vei_WIWc

Smart Digestion Radio
SDR 257: Transverse Myelitis

Smart Digestion Radio

Play Episode Listen Later May 4, 2021 10:14


Strut It with Elizabeth Marberry
Turn Struggles Into Success Stories with Jenny Siegle

Strut It with Elizabeth Marberry

Play Episode Listen Later Apr 21, 2021 42:39 Transcription Available


Get ready to BE INSPIRED as you hear Jenny's story about how she was able to overcome obstacles and turn struggles into success stories!In today's episode Jenny Siegle shares how she was paralyzed at nine months of age from Transverse Myelitis. She is an incomplete C4/C5 quadriplegic and uses an electric wheelchair for her daily mobility.She takes us on her journey of how she took every opportunity given to her (along with her exceptional upbringing, attitude & mindset) and built a successful career as a sports producer, writer, public speaker and disability advocate.My hope is that your heart & soul will be deeply served by her story and unique life perspective. She's truly a POWERHOUSE and her story inspires me to live with more courage and confidence.You can find out more about Jenny here: https://jennysiegle.com/More of your host, Elizabeth Marberry:FB Group - ConfidentFeminineBodyGroup.comIG - https://www.instagram.com/elizabethmarberry/Interested in joining or learning more about the Confident Feminine Body Program? Book a free 15 min session with Elizabeth at TalkToElizabeth.com

Your Everything Success!!
[EP 68] Natasha Baker | Breaking Boundaries

Your Everything Success!!

Play Episode Listen Later Mar 28, 2021 68:01


Love this episode? Make sure you leave us a review! In this podcast, we speak with Natasha Baker. Having contracted a virus, Transverse Myelitis at just 14 months old, Natasha was left with permanent nerve damage, loss of balance and sensation and severe weakness in her legs. Watching the Sydney 2000 Paralympics, she set herself the goal of one day becoming a gold medalist. Many years later, Natasha has won 11 Gold Medals and 5 Silver between the Olympics, World Equestrian Games and the European Championships. The Rio 2016 Games saw Natasha cement her place as one of Britain's finest ever Paralympics when she and Cabral retained their London golds and added an unprecedented third in the Team Competition. Natasha works tirelessly to change the perception of disability, to inspire the next generation of Paralympic athletes and to show the world that despite any challenges, incredible things can be achieved! Follow Your Riding Success on Instagram here. Follow Natasha on Instagram here 

Stories of Hope in Hard Times
Sue Lamoree: My Key to Success When My Body Fell Apart

Stories of Hope in Hard Times

Play Episode Listen Later Feb 3, 2021 64:19


Sue Lamoree didn't know why she was having a hard time walking until she was diagnosed with Transverse Myelitis. She shares how she learned to navigate life with hope and faith from a wheelchair. On this episode Sue shares: The importance of "remembering" How God opens doors to our dreams in ways we didn't expect The benefits of Equine Therapy Get past the bitter and learn to be gracious God never abandons us--EVER! You can find joy in your adventurous journey One of my favorite stories Sue shared was after her diagnosis when she was trying to sleep, but she couldn't. As she lay in bed she began to picture Jesus holding her through the night as she lay there grieving and felt peace. At that moment she knew everything was going to be okay. So, she kept going. #tamarakanderson #storiesofhopeinhardtimes #podcast #transversemyelitis #wheelchair #equinetherapy #horses #joy #journey #God #prayer You can find the complete show notes to today's episode and the transcript here: https://tamarakanderson.com/podcasts/sue-laramee-my-key-to-success-when-my-body-fell-apart (https://tamarakanderson.com/podcasts/sue-lamoree-my-key-to-success-when-my-body-fell-apart)

5 Kyngdoms Radio
Sue Lamoree: My Key to Success When My Body Fell Apart

5 Kyngdoms Radio

Play Episode Listen Later Feb 3, 2021 64:18


On this episode of the Stories of Hope in Hard Times Podcast, Tamara K. Anderson interviews Sue Lamoree. Sue didn’t know why she was having a hard time walking until she was diagnosed with Transverse Myelitis. She shares how she learned to navigate life with hope and faith from a wheelchair.#tamarakanderson #storiesofhopeinhardtimes #podcast #transversemyelitis #wheelchair #equinetherapy #horses #joy #journey #God #prayerYou can find the complete show notes to today's episode and the transcript here: https://tamarakanderson.com/podcasts/sue-lamoree-my-key-to-success-when-my-body-fell-apart

stories body fell key to success transverse myelitis hard times podcast tamara k anderson
Nurses on Fire
This Nurse is a Pioneer Revolutionizing the Nursing Profession - Ep. 80

Nurses on Fire

Play Episode Listen Later Jan 14, 2021 71:30


Andrea Dalzell is the first registered nurse in a wheelchair to get through nursing school in New York City. Diagnosed with Transverse Myelitis at a young age, she did not allow her disability to become or define her. As an advocate and activist for the rights of people with disabilities, she's garnered various awards. Andrea was crowned Ms. Wheelchair New York 2015, and utilized her title and platform " Life, Liberty and the Pursuit of Access" to promote her message and belief that people with disabilities can live a fulling life. She has recently been featured on Good Morning America, Access Hollywood, Forbes magazine, and O Magazine. She inspired the innovative addition to the Apple Watch to track pushes instead of steps for everyone who uses a wheelchair. Most recently she was awarded a million-dollar Craig H Nielson foundation visionary award from which she created the Seated Nurse to allow for people who have disabilities to get into health professions. Please join me here, and follow me on social media, Instagram and Facebook. Join the Nurses on Fire Community and get access to resources to guide you on the path to Financial Freedom.Oh and please subscribe and leave a review on whatever app you're using to stream this podcast. Get results by taking action:Follow Andrea on InstagramAndrea on Good Morning AmericaAndrea in ForbesWork with our financial partners….Get the student loan plan that could have saved me $80kFigure out if your retirement plan is optimized for you. Stay connected:Join the NOF Facebook groupTo read the full show notes, visit https://www.financiallyintentional.com/podcastPlease share this podcast with friends, family and colleagues

Mothers of Misfits
Parenting a Child with Transverse Myelitis | Mary Ann McCarthy

Mothers of Misfits

Play Episode Listen Later Jan 12, 2021 29:42


Everything changed for Mary Ann and her family on December 20, 2017. She got a call that no mom wants to receive - her daughter collapsed on the playground. Mary Ann later found out that her daughter, Claire, has transverse myelitis. Listen in as Mary Ann shares the difficult process of coping with such a serious diagnosis and helping her young daughter manage paralysis. Learn more about this episode on our website: www.mothersofmisfits.com

Med Mints
Neurology — Transverse Myelitis

Med Mints

Play Episode Listen Later Nov 17, 2020 11:45


Transverse myelitis is a disease where there is inflammation in the spinal cord. This can lead to serious problems in the sensory, motor or even autonomic systems. In this episode I will explain the pathophysiology, causes, symptoms, diagnosis and treatment of transverse myelitis.

Original Series
#98 - Victoria Arlen | Dance Into Impossible

Original Series

Play Episode Listen Later Oct 16, 2020 77:32


Victoria Arlen’s life drastically changed in 2006 at the tender age of eleven when she developed two rare conditions known as Transverse Myelitis and Acute Disseminated Encephalomyelitis. She slipped into a vegetative state in which doctors had written her off as a lost cause. Victoria spent nearly four years “locked” inside her own body completely aware of what was going on just unable to move or communicate. Doctors believed there was little hope. She could hear doctors say to her family, it may be better off to give up. Nor she or her family gave in. In 2010 after almost four years she began the nearly impossible fight back to life. Learning how to speak, eat and move all over again. Victoria went on to exceedingly defy the odds and not only recovered but has since become an accomplished Motivational Speaker, Television Host and Swimmer. Her swimming resume includes three Silvers and a Gold medal from the London 2012 Paralympic Games as well as multiple World, American and Pan American Records.  In April 2015, Victoria made the transition from professional athlete to sportscaster and joined ESPN. In the Spring of 2016 Victoria defied yet another odd and after spending nearly a decade in a wheelchair paralyzed from the waist down was able to learn how take one step after another and eventually not only did she learn how to walk but within a year and a half in the Fall of 2017 she learned to dance as a contestant on Season 25 of Dancing with the Stars. Victoria's Book - Locked In Send me an email! ben@heroicminds.live  

The Highwire with Del Bigtree
ASTRAZENECA SAGA CONTINUES

The Highwire with Del Bigtree

Play Episode Listen Later Sep 28, 2020 23:48


Covid vaccine manufacturer AstraZeneca was forced to suspend trials when a participant developed Transverse Myelitis. What they didn’t want to tell the public was another participant developed Multiple Sclerosis back in July. Del discusses the trial blueprints, and why this “warp speed”vaccine is very worrisome.

Adaptdefy
#48 Andrea Dalzell- The Seated Nurse

Adaptdefy

Play Episode Listen Later Sep 14, 2020 49:04


Andrea Dalzell was diagnosed with Transverse Myelitis at the age of 5, but growing up using a wheelchair didn’t stop her from pursuing a career in healthcare! Today, she is the first registered nurse who uses a wheelchair in NYC.

Your Positive Imprint
Cody Unser Paralyzed Advocate for People with Disabilities

Your Positive Imprint

Play Episode Listen Later Sep 14, 2020 48:07


Transverse Myelitis attacked the spinal cord of 12 year old Cody Unser.  Cody is paralyzed. Part 2 continues with the transition into life following paralysis. As a voice and advocate for people with disabilities, Cody Unser is heard from under the sea as a scuba diver to around the world. She speaks openly about the secondary conditions of paralysis that most of us take for granted. Help change the conversation in our communities from sympathy to one of empathy. 

Team Never Quit
Best of Team Never Quit Podcast | Victoria Arlen - Author of Locked In, ESPN Personality, and Paralympics Champion

Team Never Quit

Play Episode Listen Later Aug 12, 2020 55:29


Imagine being a normal kid for eleven years and then due to an unbelievable rare condition, spending the next four years of your life literally trapped inside your own body inside a hospital, unable to communicate with the outside world, suffering through non-stop seizures, while your condition worsens and the doctors offer no sliver of hope to your family...all the while you're still lucid in mind and spirit, desperately trying to get back to the life you once knew. At the age of eleven, Victoria Arlen developed two rare conditions known as Transverse Myelitis and Acute Disseminated Encephalomyelitis, which rendered her “locked” within herself. She went from being a completely healthy, normal kid to a complete vegetable in three months. She lost the ability to walk, talk, move, and function. Everything began to shut down, including all of her cognitive abilities. Victoria Arlen not only suffered and survived through this unbelievable battle but has gone far beyond the norm to thrive and has mastered the “never quit” attitude to fuel her extraordinary accomplishments. She is a current television personality for ESPN, as well as an actress, speaker, model, and World-record setting Paralympian swimmer.

EmBRACE IT With Lainie & Estela - Look Good + Feel Good = Living Your Best Life With Disabilities

Daughter of immigrant parents, Andrea Dalzell was diagnosed with Transverse Myelitis at the age of 5 and using wheelchair by age 12. Disability didn't stop her from pursuing a career in nursing, winning the title of Miss Wheelchair NY and becoming a spokeswoman for Apple. This is an interview you won't want to miss!Follow Andrea on IG @theseatednurseLooking for more great tips, hacks and blogposts? Visit: Trend-Able.comFind more info and CMT patient resources on: HNF-cure.orgEnjoying our content? Help others find our podcast and EmBrace their own challenges... move us up in Apple listings with a 5-star review! 

United On Wheels: The Wheelchair Lifestyle Podcast

On this episode of United on Wheels, Paul is joined by “The Seated Nurse,” Andrea Dalzell. Andrea Dalzell was diagnosed with Transverse Myelitis at the age of 5, but that has never stopped her from pursuing and ultimately reaching her personal goal of working as a frontline registered nurse. Listen in as she talks in … Continue reading The Seated Nurse →

Adaptdefy
#33 Bean Gill - Mental & Physical Health Guru

Adaptdefy

Play Episode Listen Later Apr 9, 2020 56:38


There aren’t many people with a goal to live to 109 years old, but Benveet Gill (Bean for short) has her sights firmly set on this and other lofty goals. Struck down by Transverse Myelitis and paralyzed from the waist down while on vacation with her friends when she was 30, Bean turned the worst moment in her life into an opportunity to work on her mental health, build a thriving rehabilitation business, and help change healthcare and services for the disabled in Canada. Key learnings and tips and tricks from this podcast include: Managing your mental health Dating Job interviews when you're disabled How to stay fit Choosing the right partner in business Navigating cultural stigmas How to stay focussed on a goal How to change the system

Inside Lyme Podcast with Dr. Daniel Cameron
A 25-year-old man with acute transverse myelitis and Lyme disease.

Inside Lyme Podcast with Dr. Daniel Cameron

Play Episode Listen Later Apr 1, 2020 7:55


Dr. Cameron feels that the best way to get to know Lyme disease is through reviewing actual cases. In this Inside Lyme Podcast episode, he will be discussing a 25-year-old man with transverse myelitis and Lyme disease. Dumic and colleague first discussed this case in the journal IDCases in 2019.“A previously healthy 25-year-old man presented with inability to urinate and frequent falls associated with bilateral lower extremity weakness and numbness.” wrote the authors.His condition worsened. He began to fall due to the weakness of both legs and problems with his gait. His MRI revealed myelitis. His spinal tap revealed pleocytosis consistent with Lyme disease.The man’s motor, sensory, and autonomic dysfunction were typical of acute transverse myelitis. He was diagnosed with acute transverse myelitis and Lyme disease.You can hear more about these cases through his blogs, social media, and YouTube. Sign up for our newsletter to keep up with these cases.How to Connect with Dr. Daniel Cameron:Check out his website: https://www.DanielCameronMD.com/Call his office: 914-666-4665Email him: DCameron@DanielCameronMD.com Send him a request: https://danielcameronmd.com/contact-daniel-cameron-md/Like him on Instagram: https://www.instagram.com/drdanielcameron/Join his Facebook group: https://www.facebook.com/danielcameronmd/Follow him on Twitter: https://twitter.com/DrDanielCameronSign up for his newsletter: https://www.DanielCameronMD.com/Subscribe and ring the bell: https://www.youtube.com/user/danielcameronmd/ Leave a review on iTunes or wherever else you get your podcasts.We, of course, hope you’ll join the conversation, connect with us and other readers, ask questions, and share your insights. Dr. Cameron is a Lyme disease expert and the author "Inside Lyme: An expert's guide to the science of Lyme disease." He has been treating adolescents and adults for more than 30 years.Please remember that the advice given is general and not intended as specific advice as to any particular patient. If you require specific advice, then please seek that advice from an experienced professional.

The Mind Your Own Life Podcast
Ep. 10 - The Doula Life with Kristin Mundy

The Mind Your Own Life Podcast

Play Episode Play 60 sec Highlight Listen Later Mar 5, 2020 60:42


About the Episode: When I tell people I'm certifying as Doula, I get so many questions;  what is a Doula? What do Doulas actually do? I have midwives, do I still need a Doula? I'm having a hospital birth – Doulas only do homebirths, right? I want the drugs, don't Doulas just try to talk you into a natural birth? These are all valid questions that come up about Doula work as this profession becomes more regulated and mainstream, so I'm very excited and honoured to have a seasoned Birth and Postpartum Doula, Kristin Mundy, on today's episode of the podcast to share her accounts of this work and how beneficial having Doula support can be for families who are transitioning into parenthood or adding a member to their family.In addition to sharing openly about her experiences as a Doula, Kristin is also sharing about her harrowing experiences with Lupus SLE and Transverse Myelitis as well as pregnancy loss. Her story really touched me, as she overcame an extremely difficult prognosis that she may never walk again, over six years ago. Today, Kristin is completely healthy and thriving thanks to self-care, mindset work and low-toxic living.This episode is for you if you're pregnant and considering hiring a Doula, if you're interested in becoming a Doula – and especially if you're dealing with a challenging diagnosis or prognosis and need inspiration to help you to see how much healing potential we have within us! Bio: Kristin Mundy is a Birth and Postnatal Doula, a clean beauty advocate with Beautycounter and a low-tox living educator.  Kristin first started her path to health, wellness and advocacy after she was given a life-changing diagnosis in 2013 of Lupus SLE and Transverse Myelitis, which left her paralyzed from the waist down.Kristin now has full use of her legs and has been in remission and medication free for almost 6 years — which she accredits to self-care, mindset, a nontoxic lifestyle, nutrition and inner self-healing.  From her own navigation through the healthcare industry, she realized there was a big need for advocacy and education.  That need combined with her love for womanhood — becoming a doula became her life's passion.Kristin now runs The Doula Life, a little hub on the internet that aims to empower mothers and arm them with educated information about birth, postpartum, how to be a conscious consumer and protect yourself from environmental toxins. Key Takeaways:Doulas provide physical, emotional and informational support to families during pregnancy, labour, birth and in the postpartum phaseWhen you're practicing heart-centred work, setting boundaries and practicing self-care is very importantOur health struggles become a part of our story, and can help propel us to creating our aligned lives  Links:Instagram: https://www.instagram.com/the.doula.life/?hl=enWebsite: https://www.beautycounter.com/en-ca/kristinoblak

The Highwire with Del Bigtree
EX-VAX FILES THE ALL-AMERICAN

The Highwire with Del Bigtree

Play Episode Listen Later Feb 25, 2020 17:16


The Highwire’s ‘Ex-Vax Files’ Series continues with the story of former firefighter, Nick Gauthier, a 34-year-old father of three, severely injured by a tetanus shot a few months ago. Nick, a PhD trained audiologist has been diagnosed with Transverse Myelitis, ADEM and hearing loss, and is unsure if he will be able to work in the career he loves ever again. Here, he shares how his life has been turned upside down.

One and One Podcast
Erin Kelly

One and One Podcast

Play Episode Listen Later Feb 18, 2020 33:30


Erin Kelly was a Sophomore Varsity Softball Player at Hackensack High School with a great future in the sport, when one night she woke up and couldn't feel her legs. Erin had contracted Transverse Myelitis, a disorder caused by the inflammation of the spinal cord. Instead of attending softball practice, Erin had to spend 6 weeks in rehab re-learning how to walk. She discusses what she went through in the hospital, how intense those 6 weeks of re-learning how to walk were, having a positive attitude through the whole ordeal, why she wasn't able to make it back on the softball field, and how her experience led her to her current career as a nurse.

Your Resource For Success Podcast
The World Is His Inspiration

Your Resource For Success Podcast

Play Episode Listen Later Feb 7, 2020 26:48


Abhijit Ganguly, CEO of UP WORDS MagazineAbhijit runs his Empire from Kolkata, India. Despite living with Transverse Myelitis and with chronic pain as his constant companion, Abhijit created a powerful, positive and uplifting digital magazine where he interviews folks from around the world who have inspiring journeys and who had to overcome great odds. This magazine gives HOPE to its readers. Abhijit, also founded the first Support Group for Transverse Myelitis sufferers in India. Recently, he was diagnosed with Bell's palsy and believes that life's limitations can inspire us to strive for heights we may not have reached otherwise.

Wheel Stories
13. Jennifer Nachreiner

Wheel Stories

Play Episode Listen Later Jan 22, 2020 71:33


Jennifer Nachreiner joins Wheel Stories for episode 13. Jennifer is the mom to Nolan, a witty and fearless six-year-old. Her journey began four years ago when Nolan was diagnosed with Transverse Myelitis and became paralyzed from the neck down. Each day, they strive toward recovery and regaining strength so that Nolan can be independent. Jennifer has seen her entire life change over the last four years as she and her husband, Eric, moved their family from Pittsburgh, PA to Louisville, KY to give Nolan the best care possible. Jennifer shares her life in a candid conversation explaining the ups and downs of raising a quadriplegic. Jennifer says her family works hard but plays even harder, and her story is sure to motivate you to tackle the obstacles before you. Jennifer was six-months pregnant with her youngest son, Henry, when Nolan was paralyzed. She had no idea how she was going to manage a newborn and a newly paralyzed two-year-old, but Jennifer discovered she was stronger than she ever imagined. Nolan’s Wheelchair: Permobil Koala / https://permobilus.com/product/koala/ Making Nolan’s Life Easier: Apple Voice Control for iPad Follow Nolan on Facebook: https://www.facebook.com/getwellnolan/ Connect with Wheel Stories: @wheelstoriespodcast on Facebook & Instagram

Team Never Quit
Victoria Arlen: Author of Locked In, ESPN Personality, and Paralympics Champion

Team Never Quit

Play Episode Listen Later Sep 18, 2019 57:38


Imagine being a normal kid for eleven years and then due to an unbelievable rare condition, spending the next four years of your life literally trapped inside your own body inside a hospital, unable to communicate with the outside world, suffering through non-stop seizures, while your condition worsens and the doctors offer no sliver of hope to your family...all the while you're still lucid in mind and spirit, desperately trying to get back to the life you once knew. At the age of eleven, Victoria Arlen developed two rare conditions known as Transverse Myelitis and Acute Disseminated Encephalomyelitis, which rendered her “locked” within herself. She went from being a completely healthy, normal kid to a complete vegetable in three months. She lost the ability to walk, talk, move, and function. Everything began to shut down, including all of her cognitive abilities. Victoria Arlen not only suffered and survived through this unbelievable battle but has gone far beyond the norm to thrive and has mastered the “never quit” attitude to fuel her extraordinary accomplishments. She is a current television personality for ESPN, as well as an actress, speaker, model, and World-record setting Paralympian swimmer. Hear her compelling story in this podcast interview with hosts Marcus and Morgan Lutrell. Support the show.

Human Potential At Work
E156: My Life, My Hope- With Sarah Todd Hammer

Human Potential At Work

Play Episode Listen Later Apr 24, 2019 40:35


Sarah Todd Hammer joins the program to discuss her journey, which includes becoming  paralyzed from the neck-down at age 8 due to a rare neuroimmune disorder called Transverse Myelitis that damages the spinal cord. Since that time, Sarah has recovered the ability to walk and partial use of her arms and hands, and has gone on to write 3 books and is a dancer and choreographer.   

This Is This
How YOU Doin'?

This Is This

Play Episode Listen Later Jul 15, 2018 39:09


David and Kristen check in to talk about how they are doing in this last episode of Season 1 of THIS IS THIS.  When this podcast began in early March, Kristen had just broken her ankle.  It was a little over a year since her Spinal Stroke and she was newly and definitively diagnosed with SS, rather than the earlier presumption of Transverse Myelitis.  Today David and Kristen recap how far they've come, what physical and emotional hurdles continue to exist, as well as one or two things they look forward to. We'll be back August 12th with the first episode of Season 2. Thank you for joining us!

BrainWaves: A Neurology Podcast
#97 What is so idiopathic about transverse myelitis?

BrainWaves: A Neurology Podcast

Play Episode Listen Later Feb 15, 2018 24:37


We've abused the term, 'idiopathic.' Not all clinical conditions have to have an unclear cause. More and more, we are finding out the answers. This week, using transverse myelitis as an example, Dr. Clyde Markowitz shares his experience in working up unknown etiologies of spinal cord inflammation. Produced by James E. Siegler. Music by Quantum Jazz, Rui, and Steve Combs. Voiceover by Erika Mejia. BrainWaves' podcasts and online content are intended for medical education only and should not be used for clinical decision making. REFERENCES Zalewski NL, Flanagan EP and Keegan BM. Evaluation of idiopathic transverse myelitis revealing specific myelopathy diagnoses. Neurology. 2018;90:e96-e102. Bevan CJ and Cree BA. Fulminant Demyelinating Diseases of the Central Nervous System. Semin Neurol. 2015;35:656-66. Greenberg BM and Frohman EM. Immune-mediated myelopathies. Continuum (Minneap Minn). 2015;21:121-31. Kimbrough DJ, Mealy MA, Simpson A and Levy M. Predictors of recurrence following an initial episode of transverse myelitis. Neurol Neuroimmunol Neuroinflamm. 2014;1:e4. Cobo Calvo A, Mane Martinez MA, Alentorn-Palau A, Bruna Escuer J, Romero Pinel L and Martinez-Yelamos S. Idiopathic acute transverse myelitis: outcome and conversion to multiple sclerosis in a large series. BMC Neurol. 2013;13:135. Jacob A and Weinshenker BG. An approach to the diagnosis of acute transverse myelitis. Semin Neurol. 2008;28:105-20.

LIVETHEFUEL - Health, Business, Lifestyle
143: Living with Transverse Myelitis, Sick Biz, and Home-Based Entrepreneurship with Hilary Jastram

LIVETHEFUEL - Health, Business, Lifestyle

Play Episode Listen Later Jan 15, 2018 110:19


Today's Sick Biz Co-Host, Hilary Jastram, Is Helping Entrepreneurs Who Are Chronically Ill and Disabled:Hilary is the editor to Ryan Stewman as well as for other multiple successful and high-producing entrepreneurs. She was also an editor at The Good Men Project, blogger for the Huffington Post, and writing for The Might and Influencive (https://www.influencive.com/) , among other publications. Hilary is a founder of Sick Biz which is dedicated to helping entrepreneurs who are chronically ill and disabled. She is also the Author of 'Killing Karl' (2012) – a novel as told from the point of view of a serial killer’s wife. and 'You Can Never Go Wrong By Being Kind' (2017) – “Driving on Kindness” On This Episode You Will Hear: [spp-timestamp time="00:30"] Introduction [spp-timestamp time="01:40"] Hilary joins in as our latest guest co-host. [spp-timestamp time="02:20"] Makeup free truth and transparency on home-based entrepreneurship. Truthful video shoots and Facebook Live Challenges. [spp-timestamp time="04:00"] Scott beats his girlfriend "up out of bed" in the morning. [spp-timestamp time="05:30"] The challenges of embracing HOW to work from home. [spp-timestamp time="07:15"] The self-work and that honeymoon phase of being an entrepreneur. [spp-timestamp time="01:44:40"] Final Words   [spp-tweet tweet="Living and Succeeding with Transverse Myelitis, check out SickBiz.com #SickBiz @J_HillMark "] [youtube https://www.youtube.com/watch?v=jxjZnFAU_9s] Links and Resources: The Sick Biz.com (http://www.sickbiz.com/) Sick Biz on Facebook (https://www.facebook.com/sickbiz/) J. Hill Mark Writer on Facebook (https://www.facebook.com/jhillmarkwriter) Hilary Lauren Jastram on Facebook (https://www.facebook.com/hilary.lauren.39) Hilary Lauren Jastram on Twitter (https://twitter.com/J_HillMark) Hilary Lauren Jastram on Instagram (https://www.instagram.com/j_hill_mark) Hilary Lauren Jastram on LinkedIn (https://www.linkedin.com/in/hilarylauren) Entrepreneurial Outlawz Group on Facebook (https://www.facebook.com/groups/entrepreneurialoutlawz/) Hilary's recent article on Entrepreneur (https://www.entrepreneur.com/article/300441) Hilary's Conditional Lifestyle with Transverse Myelitis (https://www.mayoclinic.org/diseases-conditions/transverse-myelitis/symptoms-causes/syc-20354726) People Mentioned: Influencive (https://www.influencive.com/) Ryan Stewman (http://ryanstewman.com/) Final Words: Sick Biz is a company that Hilary created for you. It is a collaborative community of people to let you know that you are never alone. We are working "together" with our entrepreneurs to build this company. Action Steps: Please Subscribe and Submit an iTunes Show Rating & Review (https://itunes.apple.com/us/podcast/livethefuel/id1150969758?mt=2) . The more reviews, the more people can find us. We love 5 Stars too! Join our private Facebook Group community called THE FUEL TANK (http://livethefueltank.com/) . Visit our  Resources (https://livethefuel.com/resources)  page and a reminder to “Keep Living The Fired Up Epic Life!”  

Ask the Expert
505. Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis

Ask the Expert

Play Episode Listen Later May 24, 2017 57:42


Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis

The Millionaire Woman Show
Episode 86: Never Make Quitting Your Option

The Millionaire Woman Show

Play Episode Listen Later Apr 11, 2017 29:50


Meet our Guest: Bean was paralyzed in 2012, by an autoimmune disorder called Transverse Myelitis. She has over 10 years experience as an X-ray technologist specializing in the Cardiac Catheterization Lab. She is also a certified Makeup Artist who has worked on numerous fashion shows and photo shoots. Since being diagnosed and achieving milestones that seemed impossible, Bean is determined to make her experience a positive one. To help others affected by disability and vowing to Never Give Up. She is the cofounder & administrator of ReYu, a local (Edmonton) non-profit Paralysis Recovery Centre. Bean was one of the featured models with disabilities in Western Canada Fashion Week. This part of fashion week was the first ever of its kind in Canada. www.reyu.com

Desert Island Discs: Desert Island Discs Archive: 2016-2018

Kirsty Young's castaway is the artist Yinka Shonibare MBE.His work has populated museums around the globe, with a vivid, subversive and often tragi-comic presence; exploring themes of cultural identity, post colonialism and the impact of globalisation. A Turner Prize nominee in 2004, he has exhibited at the Venice Biennial and internationally.His 'Nelson's Ship in a Bottle' became his first public art commission when it was one of the art works chosen for the Fourth Plinth in London's Trafalgar Square.Born in London, his parents moved the family back to Nigeria when he was three. Later he returned to Britain to finish his education but his plans to study art were brutally interrupted when he was 19 contracted the disease, Transverse Myelitis, which attacked his central nervous system and rendered him paralysed from the neck down. He had three years of intensive rehabilitation before beginning again at art school.He went on to study at Goldsmiths and was part of the Young British Artist generation.Producer: Sarah Taylor.

Desert Island Discs
Yinka Shonibare

Desert Island Discs

Play Episode Listen Later Mar 13, 2016 33:50


Kirsty Young's castaway is the artist Yinka Shonibare MBE. His work has populated museums around the globe, with a vivid, subversive and often tragi-comic presence; exploring themes of cultural identity, post colonialism and the impact of globalisation. A Turner Prize nominee in 2004, he has exhibited at the Venice Biennial and internationally. His 'Nelson's Ship in a Bottle' became his first public art commission when it was one of the art works chosen for the Fourth Plinth in London's Trafalgar Square. Born in London, his parents moved the family back to Nigeria when he was three. Later he returned to Britain to finish his education but his plans to study art were brutally interrupted when he was 19 contracted the disease, Transverse Myelitis, which attacked his central nervous system and rendered him paralysed from the neck down. He had three years of intensive rehabilitation before beginning again at art school. He went on to study at Goldsmiths and was part of the Young British Artist generation. Producer: Sarah Taylor.

britain nigeria bottle goldsmiths turner prize transverse myelitis yinka shonibare kirsty young venice biennial fourth plinth yinka shonibare mbe london's trafalgar square
Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation
Mice as Research Models in Rare Neuro-immunologic Diseases (Transverse Myelitis, Neuromyelitis Optica, Acute Disseminated Encephalomyelitis and Optic Neuritis)-8/13/2013

Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation

Play Episode Listen Later Apr 12, 2015 48:06


Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)

Ask the Expert
210. Understanding Transverse Myelitis: TM 101

Ask the Expert

Play Episode Listen Later Dec 9, 2014 58:55


Understanding Transverse Myelitis: TM 101

Inside Medicine Podcast
IM029 Krankengeschichten: Transverse Myelitis

Inside Medicine Podcast

Play Episode Listen Later Oct 6, 2014 97:55


Lange hat es gedauert, aber endlich gibt es einen neuen Teil dieser Serie. Diesmal habe ich mit Kia über ihre Erfahrungen mit einer seltenen neurologischen Erkrankung, mit dem wenig aussagenden Namen "Transverse Myelitis" gesprochen. Es geht viel um die Wahrnehmung des eigenen Körpers und der Krankheit, sowie den Verlauf der Symptome und den langsamen Prozess der Regeneration.

Disability Matters
Disability Matters with Jen Gilliland

Disability Matters

Play Episode Listen Later May 20, 2014 56:37


Joyce welcomes Jen Gilliland, who was crowned Ms. Wheelchair Pennsylvania 2014, during the annual pageant on Saturday, March 22, 2014 in Bradford, PA. She will discuss living with Transverse Myelitis, and her journey to become Ms. Wheelchair PA; she will also discuss how she plans on using her title to help all residents of PA who are living with disabilities.

Medizin - Open Access LMU - Teil 11/22
Immune-Complex Allergic Vasculitis in Association with the Immune-Complex Allergic Vasculitis in Association with the Development of Transverse Myelitis: A Case Report

Medizin - Open Access LMU - Teil 11/22

Play Episode Listen Later Jan 1, 1996


A severe vasculitis, probably therapy related, in a sixty-four-year-old man being treated for possible subacute bacterial endocarditis, was associated with the development of transverse myelitis. It is hypothesized that the vasculitis affected the small vessels to the spinal cord in the same way that systemic vasculitis can also cause a transverse myelitis.

Nurse Tori Cellfie Show
Mermaid on a Wheeled Throne. Andrea Dalzell MSN. The Seated Nurse! Survivor. Registered Nurse. Disability Rights Advocate & Activist. Speaker. Content Creator

Nurse Tori Cellfie Show

Play Episode Listen Later Jan 1, 1970 79:24


Andrea Dalzell, "The Seated Nurse" - Andrea is one of the most remarkable women we have ever had on the show. She is a Registered Nurse, Healthcare Advocate, Disability Rights Influencer, and most importantly, a Survivor. She has been featured on Apple TV, Forbes, Yahoo Life, Home Care, etc. Andrea acquired Transverse Myelitis at a young age that stopped her ability to walk as a teenager. She has had 33 surgeries and died 3 times.190 million people live with a disability worldwide. Get ready for one of the most inspirational episodes we have had to date. Prepare to leave this episode inspired and beyond motivated. Andrea was crowned Ms. Wheelchair New York 2015 and utilized her title and platform, "Life, Liberty and the Pursuit of Access" to promote her message and belief that people with disabilities can live a fulfilling life.To connect with Andrea click HERETo connect with Tori click HERE To connect with Sam click HERETo connect with Cellfie Show click HERECheck out our Youtube page HERESubscribe to the Sweet and Salty HERERate + Review the Show to Claim your Cellfie Swag Bag! HERESUBMIT YOUR CELLFIE SHENANIGANS HERETHIS EPISODE IS BROUGHT TO YOU BY RESUME RX (Code: CELLFIE Save 20%) STAND OUT IN YOUR JOB SEARCH!! Online courses, templates, and resources for healthcare professions to land the career of your dreams. We have BOTH used these products and can not recommend them more to you. CLICK HERE Nurse Résumé Templates CLICK HERE FILL-IN-THE-BLANK SOLUTION FOR YOUR RÉSUMÉ AND COVER LETTERTHIS EPISODE IS BROUGHT TO YOU BY CELLFIE STUDIOSMAXIMIZE YOUR NURSING PROFESSIONThis 28 page eBook is a digital download that provides you with NURSE PRO TIPS to help you land that dream job! This is a fully loaded guide complete with the strategies to help you master your job application and interview process. We cover all of the juicy details to help you perfect the art of interviewing.CLICK HERE THE COMPLETE NURSE INTERVIEW GUIDE TO LAND YOUR DREAM JOB!Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy