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FASD Ireland has called for urgent action to address the growing impact of Foetal Alcohol Spectrum Disorder (FASD) in Ireland. According to the HSE, the condition affects 7.4% of the population. To tell us more is FASD Ireland CEO, Tristan Casson-Rennie.Image via Getty. Hosted on Acast. See acast.com/privacy for more information.
Frankie Perez of New York describes her experiences with dating in her 30's on the east coast and it's found that the issues are the same as dating post divorce in your 40's and beyond in the West. Frankie coined a term Man-baby Spectrum Disorder, find out what it means and more. Support Frankie Sabor Y Alma
Although rare, recognizing NMOSD is crucial for improving patient outcomes through correct diagnostic and treatment approaches. Reports of atypical forms and increasing knowledge of clinical, imaging, and laboratory-specific features are fundamental for the accurate recognition of this condition. Research on targeted therapies and biomarkers measuring and predicting disease activity will improve NMOSD management. In this episode, Gordon Smith, MD, FAAN, speaks with Sara Mariotto, MD, PhD, coauthor of the article "Neuromyelitis Optica Spectrum Disorder" in the Continuum® April 2026 Multiple Sclerosis and Related Disorders issue. Dr. Smith is a Continuum® Audio interviewer and a professor and chair of neurology at Kenneth and Dianne Wright Distinguished Chair in Clinical and Translational Research at Virginia Commonwealth University in Richmond, Virginia. Dr. Mariotto is a neurologist in the Neurology Unit in the Department of Neurosciences, Biomedicine, and Movement Sciences at the University of Verona in Verona, Italy. Additional Resources Read the article: Neuromyelitis Optica Spectrum Disorder Subscribe to Continuum®: shop.lww.com/Continuum Earn CME (available only to AAN members): continpub.com/AudioCME Continuum® Aloud (verbatim audio-book style recordings of articles available only to Continuum® subscribers): continpub.com/Aloud More about the American Academy of Neurology: aan.com Social Media facebook.com/continuumcme @ContinuumAAN Host: @GordonSmithMD Full episode transcript available here Dr Smith: Neurology is an increasingly therapeutic specialty, and across many of our subspecialty areas, lots of new drugs are being approved. Are you interested in learning more about a historically disabling disorder for which we now have a spectrum of new therapies that, if used appropriately and promptly in the right clinical situation, promise to dramatically improve patient outcomes? If so, keep listening. My name's Dr Gordon Smith. Today I'll be talking with Dr Sara Mariotto about her article on neuromyelitis optica spectrum disorder or NMOSD, which she wrote with Dr Romain Marignier. This article appears in the April 2026 Continuum issue on multiple sclerosis. Dr Jones: This is Dr Lyell Jones, Editor-in-Chief of Continuum. Thank you for listening to Continuum Audio. Be sure to visit the links in the episode notes for information about earning CME, subscribing to the journal, and exclusive access to interviews not featured on the podcast. Dr Smith: This is Dr Gordon Smith. Today, I'm interviewing Dr Sara Mariotto about her article on neuromyelitis optica spectrum disorder or NMOSD, which she wrote with Dr Romain Marignier. This article appears in the April 2026 Continuum issue on multiple sclerosis. Sara, welcome to the podcast, and maybe you can start by introducing yourself to our audience. Dr Mariotto: Yes. Thanks, Gordon. I'm Sara Mariotto. I'm a neurologist, and I work at the Neurology Unit, University of Verona, where I do both clinical diagnosis and research into neuroimmunology---so, in particular, autoimmune encephalitis, NMOSD, and MOGAD. Dr Smith: Well, this is a super exciting area. Whenever I hear about NMOSD, I think of one specific patient I had, and I always think of her when I come across something like your article, which is really fantastic. So, before we dive into the details, I wonder if maybe you can just explain to our listeners who aren't up to speed on what NMOSD is, what the disorder is, and maybe why it's so important that all of our listeners learn how to recognize it quickly and get people started on therapy. Dr Mariotto: Yes, sure. So, neuromyelitis optica is an inflammatory autoimmune CNS disorder usually associated with aquaporin-4 antibodies, although there are a few cases, around 10%, who can be antibody-negative. And I think it's very much important to have in mind this disease and recognize it because it can be severe, as you pointed out; can present with very severe optic neuritis, myelitis, the brain stem, or area postrema syndrome. So, it can be really severe, affect quite young people around 40 years of age---although it can affect also the pediatric population and elderly people---and, importantly, it can be treated. It's very much important to treat this patient in the acute stage very quickly with steroids or plasma exchange in addition, and then to start a chronic treatment. So, we have treatment for this condition. So, it's very much important to, to recognize it quickly and treat the patient properly. Dr Smith: So, I wonder if we can talk a little bit about the diagnostic criteria and boundaries of NMOSD, right? So, someone who comes in with bilateral op- severe long segment optic neuritis or long segment myelitis, we think about it. But what are the boundaries? Should we be looking for this, for instance, in someone who comes in with a unilateral optic neuritis or looks like typical multiple sclerosis? Is it important to get aquaporin-4 antibodies in those patients? What do the diagnostic criteria say about this? Dr Mariotto: So, I wouldn't test aquaporin-4 antibodies in all patients with demyelinating conditions because although aquaporin-4 antibody assay is very specific, as for all assay and all antibody testing---also for MOG antibodies, for example---some false positive results can come out. So, I would suggest to test aquaporin-4 antibodies not in typical MS cases but in those who could be suggestive for not being MS, so in all those cases with atypical optic neuritis and myelitis or other syndromes. For those cases, it's important to test aquaporin-4 antibodies, but I wouldn't test them in all typical, classical MS cases. As I said, it's quite specific, the assay, so it's uncommon to have false positive results, but it can be. Dr Smith: Serum, CSF, both? Dr Mariotto: So, for aquaporin-4 antibodies, they're usually present in serum. They can be positive also in the CSF. And there are a few reports of isolated CSF positivity. But if we analyze larger samples volume, then it becomes clear that isolated CSF positivity is so, so rare that it's not recommended to test them in the CSF when serum is negative. So, for aquaporin-4 antibodies, the recommended matrix of testing is serum, which is different for MOG, which is not the topic of our article but is important to mention because MOG antibodies should be tested in serum and CSF. But aquaporin-4, I would recommend to test serum. Dr Smith: What are the boundaries between MOGAD and NMOSD? And you talked about the differential testing of antibodies, which I was going to ask about. But when should we think of NMOSD relative to MOG? Dr Mariotto: Yeah. There are aspects which are the one mentioned in the criteria, highly suggestive for NMOSD. But the clinical spectrum can be similar to that of MOGAD. Usually, although there are some clinical aspect---like, for example cortical encephalitis or ADEM, which is more typical for MOGAD, or others like area postrema syndrome, which are more typical of NMOSD. The spectrum can be similar among the two conditions, so that's why in our clinical experience, usually they ask both aquaporin-4 and MOG antibodies in patients. It's- for experts, it can be easy to differentiate the two conditions, but for nonexperts can not be so easy. Dr Smith: Can you define area postrema syndrome? I think not all of our listeners see that every day. Dr Mariotto: Yeah, sure. This is a syndrome which is highly suggestive of NMOSD. That's why I mention it. And it's characterized by nausea, vomiting, hiccups are known as the syndrome. And it is very, very suggestive because of the expression of aquaporin-4 in that area of NMOSD. That's why I strongly recommend for all patients who comes out to have this syndrome to test for aquaporin-4 antibodies. MOGAD is hardly ever positive for that, so I think that whenever you see a patient with that syndrome, you should think about NMOSD. Dr Smith: I'm just curious, aquaporin-4 is a water channel, which is kind of an interesting concept. Our conversation, I really want to make sure we give clinically important information to folks, but it's so curious to me at least, how does this actually result in a inflammatory demyelinating syndrome? For a simple neuromuscular guy, what's the immunopathogenesis of this? Dr Mariotto: Yeah, the immunopathogenesis is quite complicated, as in all CNS disorders. And of course, aquaporin-4 antibodies are the main focus, but they are not the only one. As you said, aquaporin-4 antibodies have a target, this water channel, which is at the basis of the disease, and they are produced by the interplay between T cells, B cells, and plasma cells. But then also eosinophils, macrophages, cytokines, and chemokines are involved, enter the CNS, and then another important component is complement, which is highly activated in this disease. At the end, we have astrocyte damage because astrocytes are the main target of the disease, but also axon and myelin are involved. So, it's a quite complex pathogenesis based on the antibodies, but not only on that. Dr Smith: And this will become important when we start talking about treatment. There seems to be a recurring theme of long segment demyelination, right? Optic neuritis is typically a large percentage of the length of the optic nerve, and obviously the myelitis se- more than three segments. Do you see other long segment areas of CNS demyelination, corpus callosum or things like that? Any ideas why that is, if that's true? Dr Mariotto: Of note, this is quite interesting because usually when we have NMOSD, we have a longitudinal involvement, especially of the optic nerve and spinal cord, while brain lesions are quite different. Like, we usually do not have the typical Dawsen fingers-like lesions that we have in MS, for example, or the classical periventricular or subcortical extensive lesions that we can see and we have in mind when we think about MS. In some cases with NMOSD, the brain is completely negative, so we do not see anything. And Dawsen lesion's quite suggestive of NMOSD. So, you're right. I mean, this is related partially to the expression of aquaporin-4, and that's why we have this typical involvement also for area postrema, for example, and maybe also our other examples of clinical aspect that we can see in these conditions. But it's basically linked with the expression of aquaporin-4, which is the main target of the disease. And that's why usually the brain doesn't show so much involvement as we can see in MS, for example. Dr Smith: I was actually really interested in some of the unusual manifestations or phenotypes, and I don't want to get into arcadia, really, but which of these should our listeners be familiar with that would really suggest that they should be thinking about NMOSD beyond the area postrema and other features that we've already talked about that are part of the core criteria? Dr Mariotto: Yeah. I mean, I think that the encephalic syndromes or also ADEM, which is most typical of MOGAD but can be observed also in NMOSD or PRES, for example, are syndromes that can be considered in patients with NMOSD. There are the typical ones, which are the ones showed in the criteria, but whenever we have a brainstem involvement or, like, these encephalic syndromes or also PRES, we should think about NMOSD also. Dr Smith: Another area I was interested in are red flags. In your article, you talk about red flags that might suggest an alternative diagnosis, right? And then this presumably is particularly important in seronegative patients, which 10% is not a reasonably high number, I suppose. What are red flags we should be thinking about for some other diagnosis? Dr Mariotto: Yeah. I would here mention two very important red flags. The first one is a very hyperacute onset. Usually these conditions, these inflammatory conditions have a subacute onset, so whenever you have a very, very acute onset, you should think about something else. This can occur sometimes also in NMOSD, but hardly ever occur. Like, a very acute myelitis, the first thing we should think about is a vascular origin, for example, with a lot of pain and not about NMOSD, although sometimes the differential diagnosis is not so easy. The second thing is a progression independently of relapses, which hardly ever occur in NMOSD. Usually in NMOSD, we have the onset, and then we have a relapsing disease course. That's why we have to treat patients always and not to stop treatment. But we do not have progression in the meanwhile, while we can have, for example, this in MS. Same thing is for MOGAD. So, these are two things that I think is very much important to keep in mind. Dr Smith: I want to pivot to talk about treatment because that's been super exciting. But rumor has it there are new diagnostic criteria coming for NMOSD in the next year. I bet you know a bit about those. Can you give our listeners any indication about kind of where the puck is going on this? Not so much what the criteria are specifically, but what sort of diagnostic challenges are the new criteria going to help us with once they come out? Dr Mariotto: Yeah. So basically, we are working on that, so you will read them in the next future. This is the good point of the conversation on the new criteria. And we work a lot on the definition, on the new definition and nomenclature of NMOSD; on the definition of seronegative NMOSD, which is also quite tricky; and then on the assay we should use to test aquaporin-4 antibodies, and also on potentially new syndromes which should be included into the main feature of the disease. But hopefully you will read about this very soon. Dr Smith: Looking forward to it. And Continuum Audio listeners, you heard it here first, so thank you. Let's pivot to treatment. This has been super exciting, and I wonder if the way to approach this is to start with acute management and then sort of chronic management. Would that make sense? Dr Mariotto: Sure. Dr Smith: Let's say I go on service on Friday, and I have a patient who comes in with positive aquaporin-4 and bilateral optic neuritis. What's the acute approach to managing that patient? Dr Mariotto: So, the first approach is to administer intravenous steroids, but I would not wait to escalate to plasma exchange. There is quite good evidence that we should treat the patient with additional plasma exchange very quickly, and every day of delay of plasma exchange can cause increased disability. So, we should treat patients with steroids first, and then if we are not satisfied by the recovery, soon start with a plasma exchange. There is also some evidence, although less, for IVIG, but it's important to try to treat them very quickly, even if it's Friday, you know, there is the weekend and so on. But I think it's very much important to start with steroids after excluding other infectious causes or so on, and then to start quickly with plasma exchange. The main problem could be that we do not have the results of the antibody yet. Dr Smith: Right. So, let me ask that question. You know, let's say my patient comes in on Friday, and clinical syndrome that really looks like NMOSD, and we're waiting for the aquaporin-4. There are many places where it's hard to get plasma exchange over weekends. And so, in that setting, are you better off doing the steroids over the weekend then PLEX on Monday, or should we just give IVIG because maybe it's as good as PLEX? What's your advice there? I'm trying to get ready for Friday because I know one's coming in. Dr Mariotto: That's true, that's true. Usually they come on Friday or Saturday. I think it's acceptable to have three days of steroids and see how the patient improves, and then after three days to start with plasma exchange. Actually, we have a very good improvement if we start between three and five days after onset. So, I think waiting for three days is acceptable just because we can see if the steroids work properly or not, and then we can quickly start to plasma exchange. But I would not wait, like, 10 days, you know, before starting with a plasma exchange, and I would not wait for antibody results. Dr Smith: Got it. Super helpful. And I'm actually not joking around, I learned recently that I have a reputation among our residents for having lots of optic neuritis when I'm on service, which I think is sort of karmic justice for being a peripheral nerve expert. But let me ask another question. So, let's say we do that, and the patient gets three or five days of pulse methylprednisolone and five courses of PLEX, and they're not doing well. Do you then just move right along into another agent B cell depletion therapy? I mean, what's your next step in escalation in the acute setting? Dr Mariotto: I would for sure start to, as you said, with steroids, plasma exchange, and in case IVIG, and then quickly move to chronic treatment. And for patients who are not recovering well, I would think of something which has a quick effect so we can really start treating patients very quickly. There are different options. And all over the world, there are different rules for using immunosuppression in NMOSD. Like in Italy, for example, it's different from US or other countries, Germany, for example. There are different approved treatments and different rules of using them before or after rituximab, for example. We all know that there are treatments approved for NMOSD all over the world. But in some countries, like for example in Italy, we should use rituximab first, and then if it doesn't work, escalate to the approved treatment. I know in the US it's different. But anyway, for a patient who does not improve quickly, I would start with something which has a quick effect on the disease. Dr Smith: And then rituximab versus inebilizumab, you know, CD20, CD19, what's your advice there? Is one preferable to the other, you know, if we have options to do either? Dr Mariotto: Yeah. So, between rituximab and inebilizumab, we know that the target, well, is different, but is anyway B cells, so CD19 and CD20. With CD19, we can affect both plasma blast, plasma cells, and B cells. That's why the target is broader. And of note, this is an approved drug, while rituximab is, in most countries, used as off-label treatment. Dr Smith: So inebilizumab would probably be preferable if we're able to do that. Dr Mariotto: Unfortunately, there are not so many studies comparing rituximab with the approved drug, which is, of course, a pity, but that's the case. While we have clinical trials for all the approved drugs, and although the trials were designed differently, as we mentioned in the Continuum paper, we can argue something of the comparison between the approved drugs. But it is not so clear the comparison between rituximab and the new drugs, which is also something that we should work on. Dr Smith: And then for chronic suppressive management, what other options are there? Dr Mariotto: So, in addition to B cells, target can be interleukin-6, as we know with tocilizumab or satralizumab, and then complement with eculizumab. These drugs are both based on the pathogenesis of the disease. That's why we also discuss it in the paper, which shows a clear involvement of complement, and among cytokines of interleukin-6. So, targeting these made clear that could improve the disease quite well, and that's why they designed some clinical trials on these drugs, which are now approved, as we said, for NMOSD. Dr Smith: Wow, so many options, and a lot of questions, but limited time. Let me just ask a couple of more. I see a lot of myasthenia patients, and there's a lot of variability, as you know, in patients with myasthenia, the extent to which complement is an important mechanism versus other, you know, important mechanisms. To what extent is response to a complement inhibitor kind of uniform across NMOSD? Or there's some patients who just don't respond to a complement inhibitor and others that respond really well. And then just, I'll just give my second question out is, you know, what about combination therapies for patients who have particularly challenging NMOSD? Dr Mariotto: So usually these patients have a terrific response to complement inhibitors, and this is also shown by the clinical trials where we saw how eculizumab have a very impressive effect on the disease. And also, maybe this is also your experience, a very quick effect. So that's why there are also thoughts on using it in a very acute stage of the disease. That was what I was thinking about before. But then it has a very huge effect on complement, which is a major factor involved in the pathogenesis of NMOSD also in the chronic disease stage, and that's what also we see from clinical trials. Usually, we prefer to switch treatment from one to another and not to combine them. Of course, in very difficult cases, this can be considered, but the recommendation is to switch from one of these approved drugs to the other, or from rituximab to one of the approved drugs, and try to find out the best for our patient before combining them. Dr Smith: The complement inhibitor trials are breathtaking, at least for me. If I'm trying to convince students to go into neurology, I'll say, "Take a look at that paper," because anyone who claims that we're "diagnose and adios" is so wrong. It's so exciting. So, at a high level, this must have fundamentally changed outcomes for patients. I mean, it's still a difficult disease, but what is the kind of prognosis for that patient I described who comes in, gets the therapy you talked about? What does their long-term outcome look like in this modern therapeutic environment? Dr Mariotto: So, NMOSD is almost always a relapsing disease. That's why, as we mentioned, we have to treat patients always. But the prognosis changes a lot since we were also able to use all these drugs for the disease. So, the prognosis changes if we recognize it properly and early, and if we treat NMOSD properly with immunosuppressives. So, whatever we choose it's important to start it quickly, and this is the only way that we have to improve the prognosis of this disease. We have very active cases, but we have also cases who responds quite well to this immunosuppressive treatment, since now we have, as mentioned, these ones which are very impressive and show incredible results. So, the prognosis of the disease change in the last year, thanks also to the improvement of the diagnosis and of the treatment choices for the disease. Dr Smith: I'm just... I- maybe my last question, you know, just at a personal level, not only for you as an expert who's caring for these patients, but in the patient community, this must have been a pretty exciting period of time, right? I mean, these, these drugs are coming fast and furious, and what a change. What's the kind of zeitgeist in the community, both your professional community and amongst the patient community about where we are? Dr Mariotto: Yeah, you're right. The last years were defined the years of NMOSD and also MOGAD because we had finally approved drugs which is relevant for all the disease that we treat and changed the landscape of the disease for clinicians, but also for patients. And we have more than one, as we said, so we have more options that we can also discuss with patients to try to choose the best one in terms of activity, but also route of administration or time. Some years ago, we just had rituximab, which is not approved in most of the countries, and now we have different approved drugs. And we improved the diagnosis of the disease thanks to the availability of live cell-based assay. And then we are working a lot also on biomarkers like GFAP, for example, which has been shown to be a very attractive biomarker able to mark disease activity and maybe also prognosis on this disease. So, you're right. I mean, in the last years, the landscape of NMOSD changed a lot. Dr Smith: Sara, thank you so much for talking with me. I could keep going for another half an hour, but I would be in trouble with my editor, so I think we probably need to wrap it up. But thank you so much. This has been very informative. Dr Mariotto: My pleasure. Dr Smith: Mine too. Thank you. Again, today I've been interviewing Dr Sara Mariotto about her article on NMOSD, which she wrote with Dr Romain Marignier. This article appears in the April 2026 issue of Continuum on multiple sclerosis. Be sure to check out Continuum Audio episodes from this and other issues, and thanks to you, our listeners, for joining us today. Dr Monteith: This is Dr Teshamae Monteith, Associate Editor of Continuum Audio. If you've enjoyed this episode, you'll love the journal, which is full of in-depth and clinically relevant information important for neurology practitioners. Use the link in the episode notes to learn more and subscribe. AAN members, you can get CME for listening to this interview by completing the evaluation at continpub.com/audioCME. Thank you for listening to Continuum Audio.
In SRNA's Ask the Expert episode moderated by Krissy Dilger, Dr. Elena Grebenciucova described neuromyelitis optica spectrum disorder (NMOSD) symptoms including optic neuritis, transverse myelitis, brainstem syndromes, and intractable hiccups [00:01:05]. She outlined diagnostic evaluation using MRI and correct blood-based antibody testing (preferably cell-based assays), common diagnostic pitfalls, and the need to rule out infections before immunosuppressive treatment [07:08]. Dr. Grebenciucova reviewed urgent relapse management with IV steroids and early plasma exchange, side effects, long-term preventive therapies (FDA-approved and off-label) [14:02]. Finally, she answered community questions on supplements, chronic optic neuritis, rehab appeals, pain/spasticity, pregnancy planning, long-term treatment duration, mental health, seronegative syndromes, follow-up frequency, and recovery expectations [25:22].Elena Grebenciucova, MD completed neurology residency at the University of Chicago in Chicago, Illinois. Dr. Grebenciucova has been interested in autoimmune disorders of the central nervous system, including rare neuroimmune disorders, since medical school. After residency, she completed a neuroimmunology Fellowship under the mentorship of Dr. Brenda Banwell and Joseph Berger at the Perelman School of Medicine of The University of Pennsylvania. Currently she is an assistant professor of Neurology (MS/Neuroimmunology) and neurological infections at Northwestern University in Chicago, Illinois, and she runs the Transverse Myelitis Center there. Dr Grebenciucova sees patients with rare autoimmune conditions including NMOSD, MOGAD, transverse myelitis, and autoimmune encephalitis.00:00 Welcome and Introduction01:05 What Is NMOSD?01:59 Symptoms and Relapse Signs03:27 What Causes NMOSD?07:08 How NMOSD Is Diagnosed10:09 Key Tests and Pitfalls14:02 Acute Attack Treatment17:18 Steroid Side Effects22:19 Long-Term Therapies Worldwide25:22 Community Questions, Beginning with Vitamins27:40 Optic Neuritis Breakthroughs28:47 Chronic Optic Nerve Inflammation29:19 Winning Insurance Appeals31:23 Waist Band Pain and Spasticity34:04 Pregnancy and Family Planning37:40 Stopping Long-Term Treatment39:40 Long-Term Side Effects43:04 Mood and Personality Changes49:47 Trials for Seronegative NMOSD52:55 Follow Up Visit Schedule55:34 Relapse Recovery Timeline58:02 Closing
New figures from FASD Ireland reveal that 57% of children referred in the first three months of 2026 showed evidence of prenatal alcohol exposure, highlighting serious concerns about undiagnosed Foetal Alcohol Spectrum Disorder (FASD) and the urgent need for improved awareness, diagnosis and support services across Ireland. Joining Alan Morrissey to discuss this on Monday's Morning Focus was Tristan Casson-Rennie, Chief Executive Officer, FASD Ireland. Photo (c) FASD
Professor Jolanta Burke from RCSI's Centre for Positive Health Sciences
Foetal Alcohol Spectrum Disorder can be caused by alcohol consumption by fathers prior to conception, not just mothers drinking during pregnancy? It's all in a new report being launched by researchers at the Royal College of Surgeons this evening to mark FASD Awareness Day. John Cooke reports.
Dr. Deidre Anglin (City College, CUNY, New York) joins AJP Audio to discuss the disparate impact of schizophrenia spectrum disorder diagnosis on racial and ethnic minorities in the United States based on localized neighborhood data. Afterwards, AJP Editor-in-Chief Dr. Ned Kalin discusses the rest of the September issue of the Journal. 00:31 Anglin interview 04:40 Zip code sizes 05:18 The long legacy of redlining 07:17 Socially vulnerable neighborhoods 09:43 Structural racism, clinicians, and working with individuals 13:45 Limitations 15:56 Further research 18:08 Kalin interview 18:13 Anglin et al. 25:19 Vano et al. 29:40 Moussa-Tooks et al. 33:34 Zhang et al. Transcript Be sure to let your colleagues know about the podcast, and please rate and review it on Apple Podcasts, Google Podcasts, Spotify, or wherever you listen to it. Subscribe to the podcast here. Listen to other podcasts produced by the American Psychiatric Association. Browse articles online. How authors may submit their work. Follow the journals of APA Publishing on Twitter. E-mail us at ajp@psych.org
Clarence Ford spoke to Fiona Mahlori, Senior Manager: Community Engagement at UJ on clarifying public understanding of Foetal Alcohol Spectrum Disorder (FASD) in South Africa. Views and News with Clarence Ford is the mid-morning show on CapeTalk. This 3-hour long programme shares and reflects a broad array of perspectives. It is inspirational, passionate and positive. Host Clarence Ford’s gentle curiosity and dapper demeanour leave listeners feeling motivated and empowered. Known for his love of jazz and golf, Clarrie covers a range of themes including relationships, heritage and philosophy. Popular segments include Barbs’ Wire at 9:30am (Mon-Thurs) and The Naked Scientist at 9:30 on Fridays. Thank you for listening to a podcast from Views & News with Clarence Ford Listen live on Primedia+ weekdays between 09:00 and 12:00 (SA Time) to Views and News with Clarence Ford broadcast on CapeTalk https://buff.ly/NnFM3Nk For more from the show go to https://buff.ly/erjiQj2 or find all the catch-up podcasts here https://buff.ly/BdpaXRn Subscribe to the CapeTalk Daily and Weekly Newsletters https://buff.ly/sbvVZD5 Follow us on social media: CapeTalk on Facebook: https://www.facebook.com/CapeTalk CapeTalk on TikTok: https://www.tiktok.com/@capetalk CapeTalk on Instagram: https://www.instagram.com/ CapeTalk on X: https://x.com/CapeTalk CapeTalk on YouTube: https://www.youtube.com/@CapeTalk567See omnystudio.com/listener for privacy information.
Send us a textAbby Gardener describes how she was diagnosed with Wolfram syndrome after developing both insulin-treated diabetes and diabetes insipidus (when the urine cannot concentrate) and how this has impacted her life. Professor Tim Barrett talks about how, throughout his career, he has been researching and providing care for patients with Wolfram syndrome. He explains that it is now recognised that there are a range of features that can result from the genetic change (WFS1 spectrum disorder) and that not every patient will have all the severe changes previously described in Wolframs syndrome.
We will discuss the burden of disease from severe neonatal jaundice and its progression to kernicterus spectrum disorder highlighting both the problem as a neonate and as an older child/adult living with the consequences Session recorded on November 7 2024 2:30 PM - 3:30 PM Session block #1 Speaker name(s): Tina Slusher MD Session webpage: https://www.medicalmissions.com/events/gmhc-2024/sessions/severe-neonatal-jaundice-and-its-progression-to-kernicterus-spectrum-disorder-a-global-approach
Interview with Daniel T. Myran, MD, MPH, author of Emergency Department Visits Involving Hallucinogen Use and Risk of Schizophrenia Spectrum Disorder. Hosted by John Torous, MD. Related Content: Emergency Department Visits Involving Hallucinogen Use and Risk of Schizophrenia Spectrum Disorder
Interview with Daniel T. Myran, MD, MPH, author of Emergency Department Visits Involving Hallucinogen Use and Risk of Schizophrenia Spectrum Disorder. Hosted by John Torous, MD. Related Content: Emergency Department Visits Involving Hallucinogen Use and Risk of Schizophrenia Spectrum Disorder
If you're like most Pilates Instructors, you were taught that hypermobile clients are just more flexible than others. Although there is truth to this, there is SO MUCH MORE to know about this population. Host, Dr. Adam McAtee shares his insights on the complexity of this condition to help you be a more skilled, knowledgeable and confident instructor. Want to learn more? Click here for a 2-Week Free Trial to The Pilates Club Click here for a 2-Week Free Trial to The Anatomy & Biomechanics Club Click here to follow Adam on Instagram @adammcateepilates Episode resources Click here for a paper on the classifications HSD. Click here for the EDS criteria Click here for a trial on heavy shoulder strengthening.
In this week's podcast, Neurology Today's editor-in-chief highlights articles on the potential of a new blood biomarker for ALS, a PACP-targeted migraine therapy, and a real-world review of data on eculizumab for neuromyelitis optica spectrum disorder. This Podcast is being Sponsored by LocumTenens.com
The Living Library podcast with Kimberly Woodruff and Pete McCollum discussing how "Gardening has Possibly Saved His Life" while he was learning more about himself and his ADHD & Autism, Spectrum Disorder.
In this episode of Integrative You Radio, Dr. Nicole Rivera explores the impact of the environment on child development, inspired by her family's recent move to Italy. She shares insights on how her nearly three-year-old son, Quentin, has thrived through hands-on, tactile experiences, and discusses the importance of recognizing different learning styles, such as auditory, visual, and kinesthetic. Dr. Nicole challenges the conventional approach to diagnosing developmental delays and spectrum disorders, advocating for a more individualized understanding of children's unique ways of learning and interacting with the world. She encourages parents to support their children's natural inclinations and to consider the value of physicality, creativity, and emotional intelligence in their overall development. Tune in to learn more! What you'll learn: Environment Matters: Changing a child's environment can significantly impact their development and growth, as seen with Dr. Nicole's son in Italy. Learning Styles: Children have diverse learning styles (auditory, visual, kinesthetic), and recognizing these can help better support their individual needs. Holistic Development: Emphasizing physical, creative, and emotional intelligence is crucial in nurturing a child's overall development, beyond traditional academic measures. Quotes: "We need to embrace the idea that intelligence isn't just about book smarts, but also about how we challenge and expand our physical and creative abilities." - Dr. Nicole "Children who take in information differently aren't lacking—they're tapping into unique ways of understanding the world that can lead to incredible growth."- Dr. Nicole Curious about Integrative You? Dive into Integrative You Radio with Dr. Nicole Rivera, where she explores the intersections of holistic health, personal growth, and living in alignment with your core values. Each episode provides insights and practical advice to help you achieve a more fulfilling and energized life. Links: Website: Integrative You Instagram: Dr. Nicole Rivera Interested in Concierge Integrative Medicine? Learn More here: Integrative You. Got a question, want to schedule a call, or just want to say hi? Text us at (732) 810-1084.
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Dr. Shuvro Roy and Dr. Alexander Gill discuss his paper "Neurologic Outcomes in People with Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorder Exposed To Immune Checkpoint Inhibitors." Show reference: https://www.aan.com/conferences-community/summer-conference/abstracts/ This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.
When Sophie discovered she was pregnant, she was filled with joy but also concern as she thought back to the nights that she had enjoyed a glass of wine before knowing she was expecting. Fourteen years later, her son was diagnosed with foetal alcohol spectrum disorder (FASD). This week, Sophie shares the struggles her son faces, how she and her husband have supported him and her passion to break down the stigmas surrounding FASD. LINKS Check out NOFASD on Instagram https://www.instagram.com/nofasd.australia/For more information on FASD check out https://www.nofasd.org.au/For the FASD free helpline call 1-800-860-6113 Check out Every Moment Matters website https://everymomentmatters.org.au/ See omnystudio.com/listener for privacy information.
School Behaviour Secrets with Simon Currigan and Emma Shackleton
Have you ever wondered about the hidden challenges students with Foetal Alcohol Spectrum Disorder (FASD) face in the classroom?Join us in this Essentials episode where we investigate the science behind FASD, exploring its impact on behaviour and learning, and providing you with the essential strategies you will need to support affected students. Ready to create an inclusive learning environment for students with FASD? Discover the answers here!Important links:Click here to hear all of episode 31.Get our FREE SEND Behaviour Handbook: https://beaconschoolsupport.co.uk/send-handbookDownload other FREE SEMH resources to use in your school: https://beaconschoolsupport.co.uk/resources
This week Amy chats to her friend and Mum of one, Jules Cachia about her tough journey getting an Autism diagnosis for her daughter Mila. Jules has tips for mums who have kids with special needs, and advice for parents who have an inkling something is 'not right' with their child. Find Jules HERE follow on Instagram HERE and email here HERE. Follow Amy on everything HERE Produced by DM PodcastsSee omnystudio.com/listener for privacy information.
This week Amy chats to her friend and Mum of one, Jules Cachia about her tough journey getting an Autism diagnosis for her daughter Mila. Jules has tips for mums who have kids with special needs, and advice for parents who have an inkling something is 'not right' with their child. Find Jules HERE follow on Instagram HERE and email here HERE. Follow Amy on everything HERE Produced by DM PodcastsSee omnystudio.com/listener for privacy information.
In this episode we are joined by Dr Mirasol Forcadela to discuss Neuromyelitis Optica Spectrum Disorder
PhD student and educational psychologist, Miranda Eadonable talks about how foetal alcohol spectrum disorder can impact on children's learning and behaviour. She tells us about her research, explores how teachers can best support children and young people with FASD and points listeners to numerous useful resources.
Gabe and Allison discuss going grey and Allison hates when men wear cardigans. First, a queer listener writes in asking if it's unhealthy that she is okay with being in back to back situationships. Then, Gabe and Allison are joined by Kae Ravichandran who won the non-binary division of the Boston Marathon to talk about trans people and sports. And finally, Allison is looking into whether she has hypermobility spectrum disorder and what that means for her life. This has been a Forever Dog production Produced by Melisa D. Monts Post-Production by Coco Llorens Executive produced by Brett Boham, Joe Cilio, and Alex Ramsey. To listen to this podcast ad-free Sign up for Forever Dog Plus at foreverdogpodcasts.com/plus And make sure to follow us on Twitter, instagram and Facebook at ForeverDogTeam to keep up with all of the latest Forever Dog News Learn more about your ad choices. Visit megaphone.fm/adchoices
Gabe and Allison discuss going grey and Allison hates when men wear cardigans. First, a queer listener writes in asking if it's unhealthy that she is okay with being in back to back situationships. Then, Gabe and Allison are joined by Kae Ravichandran who won the non-binary division of the Boston Marathon to talk about trans people and sports. And finally, Allison is looking into whether she has hypermobility spectrum disorder and what that means for her life. This has been a Forever Dog production Produced by Melisa D. Monts Post-Production by Coco Llorens Executive produced by Brett Boham, Joe Cilio, and Alex Ramsey. To listen to this podcast ad-free Sign up for Forever Dog Plus at foreverdogpodcasts.com/plus And make sure to follow us on Twitter, instagram and Facebook at ForeverDogTeam to keep up with all of the latest Forever Dog News
Gabe and Allison discuss going grey and Allison hates when men wear cardigans. First, a queer listener writes in asking if it's unhealthy that she is okay with being in back to back situationships. Then, Gabe and Allison are joined by Kae Ravichandran who won the non-binary division of the Boston Marathon to talk about trans people and sports. And finally, Allison is looking into whether she has hypermobility spectrum disorder and what that means for her life. This has been a Forever Dog production Produced by Melisa D. Monts Post-Production by Coco Llorens Executive produced by Brett Boham, Joe Cilio, and Alex Ramsey. To listen to this podcast ad-free Sign up for Forever Dog Plus at foreverdogpodcasts.com/plus And make sure to follow us on Twitter, instagram and Facebook at ForeverDogTeam to keep up with all of the latest Forever Dog NewsSupport this podcast at — https://redcircle.com/just-between-us/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
https://psychiatry.dev/wp-content/uploads/speaker/post-11966.mp3?cb=1677121236.mp3 Playback speed: 0.8x 1x 1.3x 1.6x 2x Download: Clinical Recovery and Long-Term Association of Specialized Early Intervention Services vs Treatment as Usual Among Individuals With First-Episode Schizophrenia Spectrum Disorder:Full EntryClinical Recovery and Long-Term Association of Specialized Early Intervention Services vs Treatment as Usual Among Individuals With First-Episode Schizophrenia Spectrum Disorder: 20-Year Follow-up of the OPUS Trial –
Interview with Merete Nordentoft, DrMedSc, author of Clinical Recovery and Long-Term Association of Specialized Early Intervention Services vs Treatment as Usual Among Individuals With First-Episode Schizophrenia Spectrum Disorder: 20-Year Follow-up of the OPUS Trial. Hosted by John Torous, MD, MBI. Related Content: Clinical Recovery and Long-Term Association of Specialized Early Intervention Services vs Treatment as Usual Among Individuals With First-Episode Schizophrenia Spectrum Disorder
Interview with Merete Nordentoft, DrMedSc, author of Clinical Recovery and Long-Term Association of Specialized Early Intervention Services vs Treatment as Usual Among Individuals With First-Episode Schizophrenia Spectrum Disorder: 20-Year Follow-up of the OPUS Trial. Hosted by John Torous, MD, MBI. Related Content: Clinical Recovery and Long-Term Association of Specialized Early Intervention Services vs Treatment as Usual Among Individuals With First-Episode Schizophrenia Spectrum Disorder
TIMESTAMPS 00:00 Introduction to schizophrenia spectrum disorders 04:00 Types of delusions 08:50 Hallucinations 10:30 Disorganized thinking 12:45 Abnormal motor behavior 15:10 Negative symptoms in schizophrenia 17:30 Schizophrenia, brief psychotic disorder schizophreniform 21:55 Delusional Disorder 22:40 Differential diagnosis 31:05 Associated features | treatment targets 39:45 Functional impairment | Treatment targets Learn more about your ad choices. Visit megaphone.fm/adchoices
TIMESTAMPS 00:00 Introduction to schizophrenia spectrum disorders 04:00 Types of delusions 08:50 Hallucinations 10:30 Disorganized thinking 12:45 Abnormal motor behavior 15:10 Negative symptoms in schizophrenia 17:30 Schizophrenia, brief psychotic disorder schizophreniform 21:55 Delusional Disorder 22:40 Differential diagnosis 31:05 Associated features | treatment targets 39:45 Functional impairment | Treatment targets
Tune in to hear:- What are some of the most common misconceptions about Anika's work and more broadly about those on the autistic spectrum?- What is ABA and why is early intervention so important?- What might account for the precipitous growth in autism spectrum disorders? Is it superior diagnostic abilities or something else?- Why do autism spectrum disorders often go undiagnosed in girls?- What are some of the unique financial considerations for advisors with clients or children on the spectrum?- How can advisors better connect with and serve their neurodivergent clients?- For financial advisors serving families with autistic children, what should they know about the stressors that accompany this and how can they be more empathic and well informed?- What can neurotypical folks learn from people who are on the spectrum?https://abilearningcenter.comCompliance Code: 2072-OAS-11/1/2022
In this episode the shrinks talk about the treatment of schizophrenia, delusions, and psychosis. We also distinguish between all of these disorders. Join us for part 2! If you are enjoying our episodes please consider donating to https://www.patreon.com/shityourshrinkthinks THANK YOU! Please keep in mind that this podcast is for entertainment purposes only. This is not intended as individual medical or mental health advise. Listening to this podcast does not initiate a patient/provider relationship. Please consult with your individual medical or mental health team and proceed with listening to our podcast only at your own risk.
https://psychiatry.dev/wp-content/uploads/speaker/post-10219.mp3?cb=1665082737.mp3 Playback speed: 0.8x 1x 1.3x 1.6x 2x Download: Neurodegeneration Markers in the Cerebrospinal Fluid of 100 Patients with Schizophrenia Spectrum Disorder Kimon Runge et al. Schizophrenia Bulletin. 2022. Schizophrenia spectrumFull EntryNeurodegeneration Markers in the Cerebrospinal Fluid of 100 Patients with Schizophrenia Spectrum Disorder
Dr. Paul Crane discusses Neuromyelitis optica spectrum disorder, also known as NMOSD. This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.
Dr. Robert John Sharkus, III, DO and Richa Thakkar discuss their abstract, "FDA Approved Treatments for Neuromyelitis Optica Spectrum Disorder in Clinical Practice: A Survey of Academic Neuroimmunologists". You can find the abstract, along with all of our summer conference abstracts here: https://www.aan.com/MSA/Public/Events/Details/15177 This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.
It's a jam-packed episode about innovation and creativity with Stuart Butler, CMO of Visit Myrtle Beach.
In this week's episode, SPA's Anneke Flinn speaks with Kate Pollard, Senior Speech Pathologist, Director of Melaleuca Therapies situated in Nhulunbuy, Northern Territory, and member of the FASD Hub Australia. Kate chats about the speech pathology role when working with people with Foetal Alcohol Spectrum Disorder. Please follow this link to access the FASD Hub Australia: https://www.fasdhub.org.au/ Speech Pathology Australia acknowledges the Traditional Custodians of lands, seas and waters throughout Australia, and pay respect to Elders past, present and future. We recognise that the health and social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples are grounded in continued connection to culture, country, language and community, and acknowledge that sovereignty was never ceded.
Foetal Alcohol Spectrum Disorder, FASD with Tristan Casson-Rennie and Jan GriffinTristan is the founder of FASD Ireland, a not-for-profit charity that aims to raise awareness and provide support to families in Ireland living with FASD. And Jan is birth mum to Rossi who was born with FASD.They are both passionate about raising awareness of the dangers of drinking alcohol during pregnancy and removing the stigma associated with FASD in order that the families can seek the correct support. Jan didn't realise that she was pregnant for 4 months, during which she consumed alcohol. It is important to point out that Jan doesn't have an alcohol addiction and that once aware of the pregnancy she stopped, however there was never any guidance from her doctor to tell her do so.Tristan also has lived experience with his adopted son who has FASD and is campaigning in Ireland for the condition to be recognised as a disability to support the hundreds of babies born every year to parents who unwittingly don't realise the harm that alcohol can have on a foetuses brain's neurological pathways.This conversation is full of tips for parents, families and carers to use.When planning to have a baby, you and your partner should stop drinking to avoid any chance of the baby having FASD.For supportFASD IrelandNational FASD UK FASD Hub Scotland Dr Raja Mukherjee Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower
On today's episode we will be discussing and contrasting the clinical features of MS, NMO, and MOG Spectrum Disorders, with Dr. Kothari, a passionate doctor who graduated from India this year. She has high USMLE scores and, more importantly, a big passion for Neurology!.
Welcome back to our weekend Cabral HouseCall shows! This is where we answer our community's wellness, weight loss, and anti-aging questions to help people get back on track! Check out today's questions: Leanne: Hi Dr Cabral, I have a question regarding FASD, Foetal alcohol spectrum disorder. What advice can you give for a 9yr old boy affected by FASD? Symptoms are vast but include sleep issues, mood and behavioral problems, learning difficulties, ADD type behaviors although we've had an assessment for autism and add and there was no diagnosis given. Any input you have will be gratefully received! Thanks. Josh: Hey I have been having an issue with an ingrown toenail. I've had a round of antibiotics and a podiatrist trimmed the nail and didn't do the full procedure. Going back for a checkup on Sept 21. I think the nail is getting infected again, I've been soaking it in epson salt and treating it with neosporin. I've just recently learned of your podcast and was wondering what could I treat my toe with instead of neosporin, didn't realize that it was an antibiotic. Thanks! Tammi: Dr Cabral, Thank you for all the information you provide on your show. I have been listening to your show for quite some time and often though man this guy discusses mold lot. I realize that mold can be a huge issue but coming from the West Coast with our dry heat there's never really an issue. I also have lived in Japan but we had dehumidifiers in each room so still mold and mildew were never an issue. Fast forward to a few weeks ago (the beginning of August) my husband, our 13 month old and I moved to Boston. Now I'm blown away and get that mold is a crazy real thing here, that I just don't know how to manage. For example, I bought a watermelon less than a week later when my husband went to cut it there was mold underneath the watermelon. Our bathroom is constantly mildewy despite the dehumidifier being right outside the door. Our water bottles need to be scrubbed weekly even if they only contain water… I have asked several people we have met about the humidity, how they manage it in there homes and I really just don't get any response other than yea it's an issue. Could you please explain to someone who just does not know how to manage the humidity here, what do I need to be doing to manage it and to keep our family safe? Thank you Feeling ridiculous and lost Chad: Hello Dr. Cabral, love everything you do. For the past 6 months I have been miserable in my own home with near crippling allergies. When I wake up in the morning my eyes are swollen and itchy, I sneeze about 20 times and my head feels like it's underwater. The worst part is that my sinuses are swollen shut so breathing my nose is next to impossible. I'm almost positive the allergen is in my house ie. mold, dust mites, or some other indoor allergen. What would your advice be for the first step to solving this so that I can get my life back to normal. Thank you very much, Chad Samantha: Hi Dr Cabral, After running my big 5 labs it was recommended I stick to a low oxalate diet. I have read this will help with kidney stones although I haven't had any as of yet, I'm 43, but my question is if it has any connection to help with tonsil stones? I am currently starting the CBO protocol with my mom and hoping it will cure the chronic tonsil stones but if it hasn't I'm hoping to find another answer. I have listened to all previous podcasts on tonsil stones and have followed all advice regarding gargles etc BUT maybe the CBO will get me there as I know it's a biggie. I just wonder if eating low oxalate could help as well?? Thank you so much Dr Cabral. You truly are amazing. June: Hello, I have been a long timer follower, dedicated to the detox protocol and beyond. With all the podcasts available and the search engine supplied, i am unable to find a podcast that would support my dilemma. My son who has a two year old is suffering from excema and has been prescribed multiple doses of steroids “GULP” (against my counsel) is now reaching out to me for help. What podcast would be best to send to him regarding this issue. As much as I try, I cannot find out the 100's of podcasts one that speaks to this directly. Thank you, thank you, thank you Thank you for tuning into today's Cabral HouseCall and be sure to check back tomorrow where we answer more of our community's questions! - - - Show Notes & Resources: http://StephenCabral.com/2087 - - - Get Your Question Answered: http://StephenCabral.com/askcabral - - - Dr. Cabral's New Book, The Rain Barrel Effect https://amzn.to/2H0W7Ge - - - Join the Community & Get Your Questions Answered: http://CabralSupportGroup.com - - - Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Stress, Sleep & Hormones Test (Run your adrenal & hormone levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - > View all Functional Medicine lab tests (View all Functional Medicine lab tests you can do right at home for you and your family)
Dr. Genie Burnett, CEO and Clinical Director of Manna Fund, discusses the history of the Manna Fund, and plans for a new Manna House, with therapist and mental health counselor Madison Giles. Madison Giles/Manna Fund Madison Giles is a nationally certified Mental Health Counselor and graduated from Mercer University with a Masters in Mental Health […] The post The Story of Manna Fund appeared first on Business RadioX ®.
Dr. Genie Burnett, CEO and Clinical Director of Manna Fund, discusses the history of the Manna Fund, and plans for a new Manna House, with therapist and mental health counselor Madison Giles. Madison Giles/Manna Fund Madison Giles is a nationally certified Mental Health Counselor and graduated from Mercer University with a Masters in Mental Health […]
Dr. Genie Burnett, CEO and Clinical Director of Manna Fund, discusses spectrum disorders and eating disorders with therapist and mental health counselor Madison Giles. Madison Giles/Manna Fund Madison Giles is a nationally certified Mental Health Counselor and graduated from Mercer University with a Masters in Mental Health Counseling in 2020. Madison joined Manna in January […] The post Spectrum Disorders and Eating Disorders appeared first on Business RadioX ®.
School Behaviour Secrets with Simon Currigan and Emma Shackleton
FASD (Foetal Alcohol Spectrum Disorder) is a condition that's estimated to affect as many as autism, can lead to emotional and behaviour issues in the classroom, but can be very difficult to identify. So how can we recognise - and support - children with the condition?In today's School Behaviour Secrets, we explode some of the myths about FASD, look at the surprising facts and figures about drinking in pregnancy, and share how you can support pupils affected by this issue in your school.Important links:Get our FREE SEN Behaviour Handbook: https://beaconschoolsupport.co.uk/SEN-handbook.phpJoin our Inner Circle membership programme: https://beaconschoolsupport.co.uk/inner_circle.phpJoin our FREE Classroom Management and Student Behaviour FB Group: https://www.facebook.com/groups/school.behaviourDownload other FREE behaviour resources for use in school: https://beaconschoolsupport.co.uk/resources.php
We're talking about the extreme downside of alcohol consumption during pregnancy ahead of International Foetal Alcohol Specturm Disorder Day. Help Vision to keep 'Connecting Faith to Life': https://vision.org.au/donate See omnystudio.com/listener for privacy information.
The title of this video is definitely not enough to describe everything we discussed during this 30-minute talk with Rebecca Padgham, an artist and bookmaker from the UK. Initially, we invited Rebecca after she posted in a bookish Facebook community a request for some advice concerning trimming books for a person with Hypermobility Spectrum Disorder. But that definitely wasn't the only topic we covered! From making miniature books from a single sheet of A4 paper to promoting your work through Facebook and Instagram. From creating artist's books during travels to finding ways to sell your books in the year of pandemic. You can watch the video of this podcast on our YouTube channel: https://www.youtube.com/watch?v=iyL_mrpQLT4 Brought to you by iBookBinding. Bookbinding resources and tutorials: http://www.iBookBinding.com Become a patron (and get more content): https://www.patreon.com/ibookbinding You can ask our future guests questions on: Instagram — https://www.instagram.com/ibookbinding/ Discord — https://discord.gg/TJY5FeS Facebook — https://www.facebook.com/iBookBinding/ Follow Rebecca's projects: https://www.instagram.com/superpadg/ https://www.etsy.com/uk/shop/rebeccapadgham https://rebeccapadgham.com/ 00:00 - Beginning 00:46 - Rebecca's path to book arts 02:06 - First book projects 03:38 - What's after the university graduation? 04:29 - Selling your works at art markets 06:02 - Importance of networking 07:46 - Rebecca's creative process during the trips 08:27 - Travelog from Greece 12:19 - How Hypermobility Spectrum Disorder affects bookmaking? 14:22 - Rebecca's approach to triming books 16:17 - Setting realistic production goals 18:38 - More books 18:48 - Miniature concertina books 19:19 - Miniature book: Cats and Dogs 20:10 - Inspired by Micro Library books - Books made with a single sheet of A4 paper 21:07 - Miniature book: Pigs 23:00 - Miniature book: Noah's Ark 26:36 - Missing on art fairs in the year of pandemic and finding other ways to sell your work 29:31 - Promoting your work on social media 32:24 - Where Rebecca wants to take her crafts next?
Today's episode is to discuss ASD among the African American community vs the rest of America --- Send in a voice message: https://anchor.fm/aleisha-stanley/message
Jessica Rutherford and Clare Devanney-Glynn are the pioneering hosts of the Spotlight on FASD Podcast and we welcome them on to discuss this condition in the sphere of education.Foetal Alcohol Spectrum Disorder is the term for a group of conditions caused by prenatal exposure to alcohol and, perhaps surprisingly, it is the most common, non-genetic cause of learning disability in the UK (British Medical Association, 2007). Studies have shown that as much as 1 student in every class may suffer from FASD.It is incredibly important that educators and medical professionals treat FASD seriously.Here, we explore what tutors can do in a tutoring session to aid students with this condition. (Hint: it is NOT what happens in a classroom setting)The best resource for tutors who are new to FASD, as recommended by Jessica, has been produced by the NHS for Ayrshire And Arran, Understanding FASD: What Educators need to know. Start here and continue to listen in to the Spotlight on FASD Podcast.If you would like to be part of the UK's first ever Level 3 Qualification in Tutoring, enrol now by clicking here and be the first in a new crop of motivated, committed, qualified tutors. Over 8 hours of workshop-style sessions led by industry experts, you'll set yourself apart in a crowded space.We can't wait to see you there.Don't forget to review the show (on Apple, preferably!) - we'd love to hear how you found the advice, guidance and discussions inside.
In this episode, S & C talk with their "other daughter" Lacie (Jade's childhood friend.) Sean's known her since she was about 3, loves Lacie so much, and has been like another father to her... Now 19, Lacie wants to share her truths regarding Spectrum Disorder, depression, anxiety, fibromyalgia, vivid hallucinations, pain sensory issues, schizophrenia, etc. and her constant efforts to take control of her life, the difficulties of addressing them when one parent is in complete denial, being in and out of treatment facilities, and ultimately finally finding a trustworthy partner to help her find happiness.This episode will carry over into a 2nd part, as we'll reconnect with Lacie and continue the fascinating conversation.Click here to sign up for Buzzsprout today - Start your own podcast! Get a $20 gift card!*Support the show (http://www.patreon.com/illestcouple)
Dr. Rae Bacharach discusses the Neurology Today article, "Hematopoietic Stem Cell Transplantation Found Safe and Effective for Patients with Stiff Person Spectrum Disorder". Show references: https://journals.lww.com/neurotodayonline/fulltext/2021/01210/hematopoietic_stem_cell_transplantation_found_safe.4.aspx
We take a look at the Ultimate Era Spectrum games included in Rare Replay, and present the second installment of Rare Storytime.
Neuromyelitis optica spectrum disorder (NMOSD) is a rare auto-immune that can often be confused with more common conditions, like multiple sclerosis. Ophthalmologist are often the first persons to see these patients but they may be unfamiliar with the symptoms of NMOSD and that can lead to delays in diagnosis.This CME module about suspecting and diagnosing managing patients with NMOSD during an ophthalmologic visit is hosted by Michael Levy, MD, PhD, Associate Neurologist at Massachusetts General Hospital and Prem Subramanian, MD, PhD, Professor of Ophthalmology at the University of Colorado Hospital. The CME is jointly provided by American Academy of CME, Inc. and CheckRare CE, Inc, and supported by an educational grant from Alexion Pharmaceuticals.To earn a CME credit, go to https://checkrare.com/learning-center/courses/
On today's episode, we discuss brief psychotic disorder and get into the case of Sarah Henderson, a Texas woman who was sentenced to life in prison for killing her two daughters. Our new link: bytesize.me/blackbirdadvocacy Pod vCon: Spring Break - March 12-14 & 19-21, facebook.com/groups/podvcomm References: Diagnostic and Statistical Manual of Mental Disorders, 5th ed. American Psychiatric Association. Chowdhury, N.Z., et. al. (2019). First diagnosis of psychosis in the prison: results from a data-linkage study. Stephen, A. and Lui, F. (2020). Brief Psychotic Disorder. https://www.nbcdfw.com/news/local/sarah-henderson-woman-accused-of-fatally-shooting-daughters-5-and-7-may-strike-plea-deal-wednesday/213445/ https://www.nbcdfw.com/news/local/woman-shot-killed-daughters-henderson-co-sheriff/45233/
We discuss with experienced psychologist Autism spectrum, Autistic adults, inclusion, problems, parents to Autistic kids, strengths & management, entrepreneurship, jobs and much more !
Who are we and why have we created a podcast on FASD? With Clare Devanney-Glynn and Jessica Rutherford
Dr. Geoffrey Eubank, M.D., Medical Director of the Mid Ohio MS Center at OhioHealth Neurological Physicians, discusses 2 Phase lll clinical trials of Enspryng™ (satralizumab-mwge) that demonstrated robust efficacy and safety profiles for the treatment of adults living with anti-aquaporin-4 (AQP4) antibody-positive NMOSD, a rare disabling neurological disorder often misdiagnosed as multiple sclerosis. Enspryng represents significant therapeutic progress for the NMOSD community, offering the only FDA-approved injectable treatment option that can be self-administered every four weeks by a person living with NMOSD or a caregiver following training from a healthcare provider.
Dr. Kathleen Hawker, M.D., Group Medical Director, Neuroscience at Genentech discusses the recent FDA approval of Enspryng™ (satralizumab-mwge) and the findings from the clinical trial program for the treatment of adults living with anti-aquaporin-4 (AQP4) antibody-positive NMOSD, a rare disabling neurological disorder often misdiagnosed as multiple sclerosis. She explains the unique mechanism of action of IL-6 receptor activity (which is believed to be a clinical hallmark of NMOSD) and the novel recycling technology which allows for subcutaneous dosing every four weeks.
Dr. Rae Bacharach discusses a recent Neurology article entitle,d "Monoclonal Antibody Treatment During Pregnancy and/or Lactation in Women with MS or Neuromyelitis Optica Spectrum Disorder". Show references: https://nn.neurology.org/content/7/4/e723 http://hwcdn.libsyn.com/p/c/e/b/ceb419377948d273/March_03_2020_Neurology_Podcast_ver2.mp3?c_id=66015281&cs_id=66015281&expiration=1597116648&hwt=83b580f40d46eaee8408435679047899 https://neurology.libsyn.com/website/april-10-2018-issue
Link to bioRxiv paper: http://biorxiv.org/cgi/content/short/2020.07.27.222323v1?rss=1 Authors: Choi, B. Y., Lee, C. J., Oh, D.-Y., Jang, M. W., Lee, E. Abstract: Genes that are primarily expressed in cochlear glia-like supporting cells (GLSs) have never been clearly associated with progressive deafness. Herein, we present a novel deafness locus mapped to chromosome 3p25.1 and a new auditory neuropathy spectrum disorder (ANSD) gene TMEM43 mainly expressed in GLSs. We identify p.R372X of TMEM43 by linkage analysis and exome sequencing in two large Asian families. The knock-in (KI) mouse with p.R372X mutation recapitulates a progressive hearing loss with histological abnormalities exclusively in GLSs. Mechanistically, TMEM43 interacts with Cx26 and Cx30 gap junction channels, disrupting the passive conductance current in GLSs in a dominant-negative fashion when the p.R372X mutation is introduced. Based on the mechanistic insights, cochlear implant was performed on two patients and speech discrimination was successfully restored. Our study highlights a pathological role of cochlear GLSs by identifying a novel deafness gene and its causal relationship with ANSD. Copy rights belong to original authors. Visit the link for more info
Our chat today is with Sophie Harrington who is the Chief Operating Officer for NOFASD Australia. We learn, first hand, what Foetal Alcohol Spectrum Disorder is all about, and also applaud warning labels on alcoholic beverages. For more, contact:- Helpline: 1800 860 613 https://www.nofasd.org.au NOFASD Australia is a family-focused organisaton and is the essential bridge linking those with lived experience with researchers and clinicians. Our Mission To be a strong and effective voice for individuals and families living with FASD, while supporting initiatives across Australia to promote prevention, diagnosis, intervention and management.
Boris Birmaher MD. is Endowed Chair- Early Onset Bipolar Disease/Professor of Psychiatry at the University of Pittsburgh School of Medicine. This Podcast addresses two research questions: 1) Who among Children and Adolescents are at Risk to develop Bipolar Spectrum Disorder: 2) among patients who develop this disorder who is at risk for recurrence? This is a controlled prospective twenty year duration research study of children at higher risk because at least one of their parents has this disorder.
This week's special guest is standup comedian Alycia Marie. In this episode, Alycia shares her experience living with Autism Spectrum Disorder and ADHD, and how that influences and affects her career in Hollywood and dating.Who to Follow Dealing: @dealingpod Your Hosts: @delatubbie @nicholaspilapil Accidental Information: https://www.accidentalinformation.com/ Alycia Marie: @alyciamarieshow
This week's special guest is standup comedian Alycia Marie. In this episode, Alycia shares her experience living with Autism Spectrum Disorder and ADHD, and how that influences and affects her career in Hollywood and dating.Who to Follow Dealing: @dealingpod Your Hosts: @delatubbie @nicholaspilapil Accidental Information: https://www.accidentalinformation.com/ Alycia Marie: @alyciamarieshow
Multiple Sclerosis News Today columnist, Jenn Powell discusses the commonalities of pain and fatigue in patients with Neuromyelitis Optica Spectrum Disorder and Multiple Sclerosis. Are you interested in learning more about Multiple Sclerosis? If so, please visit https://multiplesclerosisnewstoday.com/
Summary – Consistency: Rules, routines, reactions – Responsiveness: To individual needs and preferences – Attention: For being lovable and positive behaviors – Validation: Of their thoughts, feelings and way of being in the world – Empathy: For how their sensory and neurological differences impact them emotionally, cognitively, interpersonally, physically – Solutions: – To help them become more mindful and mitigate or prevent triggers for unwanted behaviors. – To help them develop the skills needed to engage with a neurotypical world.
An Introduction To Community Autism ResourcesSupport the show (http://community-autism-resources.com/donate/)
In this episode of “A Presence on Your Journey” podcast, Ed Wilson, Self-Directed Manager for the Massachusetts Department of Developmental Services, will discuss, what is Self Directedness and how this model can be utilized by consumers within the Department of Developmental Services. He is joined by Jan Randall, Resource Specialist for Community Autism Resources on accessing choices in programs and services.Support the show (http://community-autism-resources.com/donate/)
There are just a handful of dietitians specializing in Autism Spectrum Disorder across the country. Since her brother was diagnosed with ASD over two decades ago, Brittyn Coleman has been immersed in learning about the diagnosis. Her master’s thesis studied food aversions and nutrient intake in children with Autism Spectrum Disorder. Before starting her private practice, she worked in interdisciplinary clinics and centers for kids with a wide variety of developmental disabilities, but her heart always stayed with ASD. She felt led to begin her own telehealth practice to increase the reach of nutrition therapy and nutrition education for families and individuals affected by ASD. This episode we discuss: the autism nutrition connection food aversions secondary to autism supporting families and students living with ASD
Dr. Sean Pittock discusses the main takeaways from his article on eculizumab in aquaporin-4–positive neuromyelitis optica spectrum disorder.
Becky, from That B-Word Podcast, is my special guest this week as she lets me bounce my theory off her that bipolar, borderline, ADHD and related impairments are all part of the same spectrum of conditions. @ThatBWord1 @BipolarStyle --- Send comments to comments@bipolarstyle.com or leave a public voicemail response (377) 944-9333
Before we dive in, Ian Kimble stops by to talk about the upcoming premiere of his film, Dead Giveaway and offers the listeners FREE SWAG! You read that right, if… Continue reading "Autism in Genre Film: Exploring the Spectrum in HUMAN CENTIPEDE 2 and TRICK ‘R TREAT with Erik Kristopher Myers"
Before we dive in, Ian Kimble stops by to talk about the upcoming premiere of his film, Dead Giveaway and offers the listeners FREE SWAG! You read that right, if… Continue reading "Autism in Genre Film: Exploring the Spectrum in HUMAN CENTIPEDE 2 and TRICK ‘R TREAT with Erik Kristopher Myers"
Before we dive in, Ian Kimble stops by to talk about the upcoming premiere of his film, Dead Giveaway and offers the listeners FREE SWAG! You read that right, if… Continue reading "Autism in Genre Film: Exploring the Spectrum in HUMAN CENTIPEDE 2 and TRICK ‘R TREAT with Erik Kristopher Myers"
Before we dive in, Ian Kimble stops by to talk about the upcoming premiere of his film, Dead Giveaway and offers the listeners FREE SWAG! You read that right, if… Continue reading "Autism in Genre Film: Exploring the Spectrum in HUMAN CENTIPEDE 2 and TRICK ‘R TREAT with Erik Kristopher Myers"
While at the Assistive Technology of NE conference in RI, we meet Tracy Lee Allard, Mary Anne Lewis and Patrick Lewis. Tracey was the keynote speaker of the conference and is an actress with Asperger’s Spectrum Disorder who hopes to change misconceptions about Autism/Asperger’s. Tracy got her start public speaking at 8 years old and can be seen in Sam and Mattie's teen zombie movie. Patrick is a 27 year old who is blind/cognitively challenged. His mom, Mary Anne, who is an occupational therapist and his other family members helped him create a business called, Purely Patrick where he makes specialty food items. You can learn more at www.purelypatrick.com
A neurologist who’s been specializing in memory loss for more than 20 years, Dr. Gayatri Devi talks with Dr. Jeanine Cook-Garard about Alzheimer’s by defining it as a spectrum disorder and how it affects different people differently. She encourages people to seek a diagnosis, because early treatment will enable doctors to manage the disease more effectively through drugs and other therapies
A neurologist who’s been specializing in memory loss for more than 20 years, Dr. Gayatri Devi talks with Dr. Jeanine Cook-Garard about Alzheimer’s by defining it as a spectrum disorder and how it affects different people differently. She encourages people to seek a diagnosis, because early treatment will enable doctors to manage the disease more effectively through drugs and other therapies
Open Forum on Neuromyelitis Optica Spectrum Disorder
Itand's International Awareness Day for Foetal Alcohol Spectrum Disorder. Weand're talking to the Dalgano Institute about the latest research and a warning about alcohol consumption when planning a family. Help Vision to keep 'Connecting Faith to Life': https://vision.org.au/donate See omnystudio.com/listener for privacy information.
downloadon iTunesThank you for time- and space-travelling back to New Orleans of April 2015 to listen to this podcast live & in person, where Billy Ray Stupendous & I caught up w/ Phil B and Lauren M of el jay fame, & Paul G of two-sport fame (football/trombone), to marvel @ th chart success of Laurie Anderson, th cross-cultural transcendence of Anne Murray, and th unlikely history of Branson, MOWe tried something new and inserted songs right in th middle of th 'cast -- enjoy, use yr whole heart, control yr gun, spread wings, get loved, be good to yr ears Table of contents:00:00:00 "Spasticus Autisticus" performed by Ian Dury00:05:05 Texas, Missouri, & Toronto | favourite Canadian band | bad bands from America | John Tesh 00:13:24 New show format | earliest musical memories00:22:04 "Fly Robin Fly" performed by Silver Convention00:25:51 Hairless down there area | when disco was a thing 00:27:16 What is music, anyhow ? | chopping time up | Time, mortality, & harmony | tribes again00:31:16 Th insignificance of lyrics | What about hip-hop ? | rapgenius00:41:07 Scientific fact: singing along feels good00:44:00 The Dusty Triangle 00:45:52 "You're Dead" performed by Norma Tanega00:48:12 "Walking My Cat Named Dog" | how to discover music | what we know bout Kate Bush00:55:24 "Running Up That Hill" performed by Kate Bush01:00:16 MTV | Maxwell | Velvet Underground type of deal | "Why Should I Love U?" | "... all the friends I was girls with ..." | Sandman & The Dreaming01:07:58 Gloomy Spectrum Disorder, Goonies Spectrum Disorder | baby on th podcast 01:12:44 Ginger Baker and ⚡ time ⚡ | "Th sun is God" -- JMW Turner 01:15:42 Censorship for babbies | Nevermind | rock stars who namedrop bands01:21:24 File-collecting vs social life | Austin Psych Fest01:26:00 Music is Children's Music | gift from an adult | parental record collections 01:32:49 Country | Staunton VA | Branson MO | Bald Knobbers01:39:49 "Old Aunt Dinah" performed by Butter Boy01:41:11 Metal Machine Music | "O Superman" 01:44:33 Th race card01:46:33 Culture as taking | Kurt Cobain's problems | growing up in bumfuck | 120 Minutes01:52:49 Trombone & American football01:58:52 Nerds & th experience of music02:03:07 Why do you think so many people are total assholes ...? | Grouper & Bob Dylan | free Belle & Sebastian image consultation02:13:55 Hip-hop, St Louis, Ferguson, and involuntary political awareness 02:25:11 Bonus Track: "Ok Denn" performed by Pill
"Lampka wina w ciąży nie szkodzi" - taki mit funkcjonuje w wielu polskich domach. Nic bardziej mylnego! Nawet najmniejsza dawka alkoholu może zaszkodzić dziecku. Przeczytajcie: http://radioklinika.pl/alkohol-w-ciazy-czy-twojemu-dziecku-grozi-fasd-alkoholowy-zespol-plodowy/
Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101
Wednesday, the 2nd of April was World Autism Awareness Day so to help you get to grips with this often misunderstood condition here's your Quick Fire Science with Hannah Critchlow and Kate Lamble Like this podcast? Please help us by supporting the Naked Scientists