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Leave the mental mind and drop into 5D heart frequency. Spend more time each day in an open heart, pure place of allowing and unconditional love. The heart consciousness allows us to slip in the zero point. A space of balance, trust and peace. Release worry and fear based thoughts. The collective consciousness has been conditioned to feel and experience separation. We can release the duality program and jump into the 5th dimension of love and allowance. Trust you, your heart is safe. You are guardian of your heart. You are invited to enjoy my Freebies https://sabrinabrightstar.com/ #lightworkers #lightwarriors #heartwarrior #wayshowers #empaths #starseeds #sabrinabrightstar #lovewarriors
Leave the mental mind and drop into 5D heart frequency. Spend more time each day in an open heart, pure place of allowing and unconditional love. The heart consciousness allows us to slip in the zero point. A space of balance, trust and peace. Release worry and fear based thoughts. The collective consciousness has been conditioned to feel and experience separation. We can release the duality program and jump into the 5th dimension of love and allowance. Trust you, your heart is safe. You are guardian of your heart. You are invited to enjoy my Freebies https://sabrinabrightstar.com/ #lightworkers #lightwarriors #heartwarrior #wayshowers #empaths #starseeds #sabrinabrightstar #lovewarriors
On this Sunday Flashback, join me as I share an incredible story about the Warriors Heart foundation, the first and ONLY private and accredited residential treatment program in the U.S. exclusively for "warriors only" – active-duty military, veterans, first responders, and EMTs/paramedics. This extraordinary program offers life-changing support to American Warriors battling drug and alcohol addiction, as well as other co-occurring issues like PTSD, mild TBI, trauma, depression, and more.In this episode, my guest is Tom Spooner, a Former Special Forces/Delta Operator and Co-Founder of Warriors Heart. With a remarkable 21-year service in the U.S. Army, including deployments in Iraq and Afghanistan, Tom Spooner brings unparalleled credibility and experience to the forefront. Since retiring from the military in 2011, he has dedicated his life to helping fellow warriors acknowledge their struggles, seek treatment, and understand that they are not alone.Throughout our conversation, Tom shares his personal journey of battling chemical dependencies, PTSD, and mild TBI resulting from a combat injury. We delve into the critical topics of suicide prevention and the challenges warriors face when seeking help for themselves. As warriors, we voluntarily put our lives on the line to protect and serve, but sometimes the weight of our experiences catches up to us. It's important to realize that seeking help is a sign of strength, and the Warriors Heart foundation is here to provide the support we need.If you or someone you know is a warrior in need of assistance, please visit our website HTTPS://beforeyougopodcast.com to learn more about how you can get help or support someone on their journey to recovery. You can also reach out to Warriors Heart directly by visiting www.Warriors.com/gethelp or calling 866-380-0023.Remember, you are not alone. Together, we can overcome any obstacle and build a brighter future.Hashtags#WarriorsHeartFoundation#RecoveryJourney #SupportForWarriors#PTSDAwareness#MilitaryAddictionHelp #HeroesAmongUs #StrengthThroughStruggles #MentalHealthMatters #BreakingBarriers #NeverAloneThis podcast uses the following third-party services for analysis: Chartable - https://chartable.com/privacyPodcorn - https://podcorn.com/privacy
This is our final episode for our Saturday Success Stories mini-series for Heart Month, February 2023, and it's hard to imagine any greater success story than the 40 Heart Warriors who have come together to create an amazing anthology called The Heart of a Heart Warrior: Congenital Heart Defect Stories of Hope. This is the book that these Heart Warriors and their families and friends would have loved to have read to help them better understand what it means to live a life with a broken heart.Co-editors, Anna Jaworski and Megan Tones, open this podcast by talking about what the process of putting together a book like this has been like. They then take turns, just as they do in the book, with conducting mini-interviews with a handful of Heart Warrior contributors in the 2nd and 3rd segments. You'll hear about new projects these authors are working on, how their lives have changed over the years since this project first came to be, or why they chose the topic they did. Anna hopes even more of the Heart Warrior contributors will share their experiences with the world, too.To pre-order the book, use this link: https://www.babyheartspress.com/heart-warrior-chd-pre-order-form.htmlSupport the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
#6 What happens when your heart doesn't perform as it should, and the answer isn't clear? In this episode, Rob Thornett reveals his fight against an elusive heart condition, his eventual lifesaving surgery, and the aftermath. He and Boots Knighton discuss the steep learning curve with medical terminologies, the power of patient advocacy, and the unspoken toll of being misdiagnosed. Rob also uncovers fascinating insights about the genetic links of myocardial bridge conditions and the remarkable role of Facebook support groups. Experience their stories of recovery, resilience, and the community's role in healing.Website: The Heart Chamber (theheartchamberpodcast.com)Transcript: Joyful Beat | The Heart Chamber (theheartchamberpodcast.com)The Heart Chamber (@theheartchamberpodcast)Thanks to Michael Moeri for being my right hand man. Michael Moeri - Audio Editor, Podcast Producer and Marketing DirectorThanks to Denise Hardy for your support and believing in me. linkedin.com/in/denise-hardy-30a51086Music by AudioCoffee0:00 intro1:30 Boots explains her reason for bringing Rob onto the Podcast. 2:10 Rob summarizes Boots's story and how they came to know each other.2:50 Rob tells us about his teaching career and how he always had a nagging "issue" and how many of us Heart Warriors are told we have anxiety4:20 Rob dives right into the myths of myocardial bridges6:00 Then, while in China, he began to really struggle7:40 He rattles through the various ER visits 8:10 He begs for a heart CT and offers to pay in cash at a rural Chinese hospital9:15 Rob notices there is "note" on the Chinese CT report and pushes for translation11:10 Rob finds himself infront of a Chinese hospital wondering what to do now with the knowledge that he had a myocardial bridge12:45 No one found Rob's myocardial bridge in the United States and often patients in the US are not told that myocardial bridges are found14:00 Boots emphasizs the importance of reading your own doctor's reports after doctor visits15:00 Rob gets to work trying to find someone in the US to help him16:00 Stanford is the main team in the US for myocardial bridging17:30 Rob walks us through how he got insurance back in the States 18:00 Boots shares which arteries were bridged on her heart20:30 Rob explains the holding pattern he entered as he waited21:30 Rob begins to deteriorate even as he taught school23:00 As Rob waits for Stanford, he unsuccessfully pursues robotic surgery28:00 Side story: Rob shares stories of other patients experiencing the issues with getting diagnosed properly28:00 Rob finally had surgery at Stanford and walks us through the process32:10 Boots shares her surgery process during Covid40:00 Rob goes into the Facebook support group for myocardial bridging42:30 Boots reflects on getting to wake up every day44:00 Rob goes back to work after surgery 17 days after surgery!47:00 Doctors who are doing robotic surgery now with success that have been shared on the Facebook site49:00 Do not let a doctor do a bypass on your bridge!52:00 Six months post op until present day 52:30 Endothelial dysfunction explained and how it takes time to heal55:00 Boots reflects on walking the day after surgery as well as her recovery57:00 Boots has been in a...
How safe is it for a woman born with hypoplastic right heart syndrome to get pregnant and carry a baby to term? What considerations need to be made when Heart Warriors with complex CHDs decide to get pregnant? What advice does a Heart Warrior Mom have for others considering having a baby?Katelynn Scoggins was born with a critical congenital heart defect known as hypoplastic right heart syndrome. Unlike many people born with HRHS, she has not had the Fontan Procedure. She has done very well medically. Katie was homeschooled and she and I have known each other forever! She is a Texan, and she was an intern with Hearts Unite the Globe for a while and I even got her to attend Toastmasters meetings with me in Gatesville. We also worked together with the Texas Chapter of the Children's Heart Foundation. Katie and Christopher Scoggins were married in May 2018. They welcomed their son, Isaiah, into the world in December 2019. She's coming on the show today to tell us about her journey to parenthood. Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Why would it be helpful for parents of adults with congenital heart defects (or CHDs) to have group therapy? What kinds of problems might parents of adult Heart Warriors face? Who provides this specialized kind of therapy?Dr. Smorra is passionate about psychotherapy for the CHD community. Being born with CHD herself, she brings experiential knowledge, along with her training, and research when working with clients, families, and medical professionals impacted by CHD. Her research interest is social work services, and therapy for individuals who are born with congenital heart disease. Her experience is counseling individuals who are permanently impacted by automobile accidents, afflicted with chronic disease, and experiencing grief, depression, anxiety, and end of life. She enjoys helping students succeed academically. Dr. Smorra earned her Bachelor's in Business Administration from Western Michigan University, Master's in Social Work from Western New Mexico University, and Doctorate in Social Work from Walden University. Currently, she is an Adjunct Associate Professor, MSW Program at Western New Mexico University, Contributing Faculty, MSW Program at Walden University, as well as Chief Clinical Officer (CCO) for Heart and Mind Counseling, LLC. She is currently licensed in multiple states.Dr. Smorra's Helpful Information:Website: www.heartandmindcounseling.comParents of adults with CHD therapy page: https://heartandmindcounseling.com/congenital-disease-group/Instagram @heartandmindcounselingFacebook: https://www.facebook.com/HeartandMindLLC/ or @heartandmindllcFacebook Group: Congenital Heart Disease and Mental HealthPlease visit our Social Media and Podcast pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/MeWe: https://mewe.com/i/annajaworskiTwitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Music thanks to the Baby Blue Sound Collective - https://music.apple.com/us/album/home-tonight-forever/1201349904If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show
Meet CHD Parents Matt & Lauren Backe! You may have heard their names recently from their photo of Matt's scar tattoo that went viral, but did you also know that they are incredible CHD advocates and that their children Jack and Everly(HW) wrote a book together?! In this episode we commiserate on raising CHD siblings and discuss their personality traits that they may have attained due to having a heart warrior sibling. We also cover how to make CHD feel normal to both your heart warrior and their siblings. You will fall in love with this family! Sign up to be notified when our book Hope and Courage: Six Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter Questions or comments? Reach out to us at tomandkathansen@gmail.com Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/tom-and-kat-hansen/message
Spirit Rock Meditation Center: dharma talks and meditation instruction
(Spirit Rock Meditation Center) Begins with 30m meditation followed by Dharma Talk
Matthew 5:8We've all heard that God is coming back for a glorious church. One that is pure, without spot or wrinkle.How do we prepare for this?Know how to exercise our faith. We are responsible for developing our faith. We can seek guidance and training from our pastors. Ultimately, it is up to us to seek it. 2 Corinthians 5:7Be confident in our identity in God. We are children of God, made in His image. Heirs of God, joint heirs with Jesus Christ.Be confident in our authority. Luke 10:19 - Behold, I give you the authority to trample on serpents and scorpions, and over all the power of the enemy, and nothing shall by any means hurt you.Know how to effectively use our weapons of warfare. Not physical weapons, but spiritual weapons. 2 Corinthians 10:3-4, Ephesians 6. The Word of God is an offensive weapon. Living and powerful declarations etc. Heb 4:12 - living and powerful and sharper than and two edged sword. We can speak the Word out into our lives, declare His blessings.All of which are required to be an effective warrior.Last of all, we need to make sure we are right with God. Living pure and holy lives.Pure in heart - Matthew 5:8. This is accomplished by being in His presence all the time.
This is a special episode of "Heart to Heart with Anna" featuring two heart friends who interacted with one another for seven years before meeting each other face-to-face in person. Anna Jaworski, our Host, was lucky to be invited to this special event. The following day, she went back to Katie, Texas to actually conduct a face-to-face interview with these long-time friends to share the excitement of the meeting and share some valuable stories sure to touch the hearts of those who listen.Do most Heart Warriors -- men and women born with congenital heart defects -- grow up knowing other Heart Warriors? Is that something that is more common today than decades ago? What kind of bond do Heart Warriors form when they come to know each other?Today's show is 'Heart Friends Meet for the First Time!' and our Guests are Lauren England and Jeni Busta.Jeni Busta and Lauren England were both born with hypoplastic left heart syndrome (HLHS). In the first two years of life, they underwent multiple surgeries to repair their hearts. They later developed arrhythmias and received pacemakers, but have continued to experience SVT and other arrhythmias which have disrupted their lives at different times. Jeni lives in Southern California with her husband Nick, a high school history teacher. They have been married for 13 years. Jeni has been actively involved in the CHD community since childhood. Who would have guessed that Jeni's making of a documentary would later bring her into Lauren's life?Lauren has lived in Texas her whole life. Her heart has led her to a passion for the arts, and a beautiful friendship with Jeni. Helpful Links:Journey's Beginning Trailer: https://vimeo.com/31302268Surviving the Teenage Years with a CHD (podcast)Adult Congenital Heart Defect Survivors Finding Love (podcast)Anniversary of a Heart Documentary (podcast)Camp Del Corazon -- https://www.campdelcorazon.org/"The Heart of a Mother" (book) https://www.babyheartspress.com/store/p2/The_Heart_of_a_Mother.htmlPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Pisces New Moon March 2022: how to become a warrior for love in painful times… If you wonder how love can move through you in such times, this episode is for you! The mystical New Moon in Pisces is a grace flood, with the moon conjunct Jupiter. This is a year of awakening, and it's… The post BONUS – Pisces New Moon March 2022 | Mysticism, Grace Floods and Heart Warriors | Embodied Astrology appeared first on Rewilding for Women.
Each Monday in February we've been broadcasting a special episode of "Heart to Heart with Anna" featuring different medical devices or products. Today's episode is the last of the four Medical Monday programs and features Greg Hummer, a Senior Technical Services Specialist for Abbott.Most of the Medical Monday programs were relatively short, but Mr. Hummer talked about 4 different devices! Are you curious about the different kinds of pacemakers available? What makes an ICD different from a pacemaker? What kind of rhythm problems do pacemakers treat? What about leadless devices? Are they science fact or fiction?Tune in for a lesson on arrhythmias heart failure, the progression some Heart Warriors face as they age, and the devices that can improve their quality of life and even save their lives.Abbott's website page on Heart Failure: https://www.structuralheart.abbott/patients/heart-failure-treatmentPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Who was the first person to close holes in the heart between the upper chambers of the heart in the cath lab? What exactly is interventional cardiology and why is it important? What future devices do our Heart Warriors have to look forward to? Today's episode is entitled “The Making of a Louisiana Legend” and our guest is Dr. Terry King.Dr. Terry King completed his training in Pediatrics and Pediatric Cardiology at the University of Texas and Duke University. He started practicing in 1965, caring for children in the state of Louisiana.In 1975, Dr. King and Dr. Noel Mills invented the “cardiac umbrella” to close holes in the heart without surgery and were the first to implant the device in humans. This technology forever changed how structural defects in the heart are repaired, both in children and adults. They were nominated for the Nobel Prize in Physiology in 1976.Dr. King considers the greatest responsibility you can give another person is the care of your child and he has dedicated his life and work to educating others on this important journey. He has helped to build the capacity of scholars and researchers in the field, delivering lectures and establishing a pediatric symposium for health professionals.He has helped to establish Neonatal and Pediatric Intensive Care Units in underserved areas of Louisiana to assist children with heart disease and their families who have no other means of receiving care. Support the show (https://www.patreon.com/HearttoHeart)
How can a person's spirituality help her when it comes to coping with her congenital heart defect? What spiritual practices can help Heart Warriors? Why would a Heart Warrior be willing to talk about her spirituality?Allison Holmes was born in 1972 with seven heart defects, and she is also a cancer survivor. She has been evaluated twice for the heart and lung transplant list but is not on the list at this time. Since Allison has Situs Inversus, doctors are not sure how to hook up a healthy heart and lungs to the rest of her organs. At present, her heart condition seems to be stable, but she is dealing with pulmonary hypertension. She works as an ESL tutor from home and volunteers with Meals on Wheels and Carolina Waterfowl Rescue. She is also an Adult Congenital Heart Association Ambassador for North Carolina. Allison feels that her spiritual beliefs have helped her through her CHD journey. In the first segment, we'll meet Allison and discover a little bit more about her health journey. The 2nd Segment will involve us learning more about how her spirituality has helped her on that journey and in the last segment, we will learn about Allison's future.Links mentioned during the episode:Allison's "Heart to Heart with Anna" episode: 'Thriving with CHD' Belen Blanton's foundationFundacion Estrellita de Belen Adult Congenital Heart Association Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!)Support the show (https://www.patreon.com/HearttoHeart)
What lessons can we learn from our Heart Warriors? Why might a Heart Mom write a book about her life experiences dealing with CHD? How does a Heart Mom use her personal experiences to fight for others in the hospital?Australian Libby Andrew is a busy mom to four sons: John, 14, Matthew, 12, Stuart, 10, and Daniel, 7. Her youngest son Daniel was born with half a heart. Diagnosed in utero at 20 weeks, Daniel was not expected to survive. He had his first surgery at 21 days old, his second surgery, a Glenn shunt, at 5 months, and a Fontan at 3.5 years of age. Unable to find the resources she needed to guide her on her journey, Libby wrote a book “Living with HALF A HEART: A Mother's Guide to Navigating Fontan Surgery.” Since his surgeries, Daniel has been thriving - he enjoys being with his older brothers and attends school. Libby's show on Amazon: https://smile.amazon.com/Living-HALF-HEART-Mothers-Navigating/dp/1925884910/refLibby's book in The Heart Community Collection: https://heartcollection.wixsite.com/bookstore/chd-education-wellnessAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817 Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Support the show (https://www.patreon.com/HearttoHeart)
What was it like to grow up with tetralogy of Fallot in the 1980s? How can having a heart defect influence your career choice as an adult? What psychological challenges do Heart Warriors face?Joy Ogawa was born in Hawaii with tetralogy of Fallot in 1979 and had an open-heart surgery at 22 months of age. She considers herself lucky to have only experienced one surgery in her lifetime.Despite other health issues affecting her eyes, ears, abdomen, and her emotional wellbeing, Joy was able to participate in physical activities and complete her education and is now a psychologist working in Corrections/Public Safety. Joy highlights her experience of living with CHD in her newly released self-published, illustrated children's book “I am a Heart Warrior.”In this episode of “Heart to Heart with Anna,” Joy shares with Anna some of the medical challenges she has faced over her 40+ years of living with a congenital heart defect and why she considers herself to be as fortunate as she is.Links mentioned in the show:Friends, to donate to Hearts Unite the Globe through the AmazonSmile Program, go here: http://smile.amazon.com/ch/46-4352863. Thank you for your support!Joy's book on Amazon: https://tinyurl.com/djvvvudfAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817 Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Support the show (https://www.patreon.com/HearttoHeart)
What lessons can we learn from our adult Heart Warriors?Why might a Heart Mom write a book about her life experiences dealing with CHD? How does a Heart Mom take her personal experiences to fight for others in the hospital?Jenny Muscatell is a licensed social worker, blogger, author, photographer, and podcaster. She earned her Bachelor’s in Mental Health and Human Services through the University of Maine. She has over two decades of experience in the social services field, specializing in crisis intervention, health systems, and end-of-life care. Deeply passionate about her work, Jenny is regarded as a fierce advocate, earning her the Child Welfare Rising to the Challenge Award. Jenny lives with her husband Dan, and two daughters. Her first daughter Faith was born with Hypoplastic Left Heart Syndrome. Jenny shared her life experiences, authoring the Amazon Best Selling book, “The Journey of Faith and an Open Heart” and as a public speaker on multiple platforms. Through faith-filled presentations, heartfelt written words, and photography, Jenny’s mission is to give voice to the vulnerable, hope to the hurting, and to make way for the unspoken to be told.Link mentioned in this podcast:Jenny's websiteAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!)Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteSupport the show (https://www.patreon.com/HearttoHeart)
What is the situation like for people with congenital heart defects in India? What happens to our Heart Warriors as they grow up? What does the Heart Community need to do in order to have a sense of justice for those born with broken hearts?Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitally corrected transposition of the great arteries (CCTGA). Since he was diagnosed, Sajani and her family faced an uphill battle for her son as they struggled to find care. At three and a half years of age, he had a pulmonary artery banding procedure at Narayana Health in Bangalore. He currently needs the arterial switch procedure. Obtaining medical care is difficult in India, as there is no insurance for congenital conditions, forcing families to rely on private hospitals. To help other families affected by CHD, Sajani started a support group in India and a letter-writing campaign to urge the health minister in the central government to address CHD. Her efforts have attracted the attention of doctors and others, who are now working together to support her cause, a life of dignity for people born with CHD. Facebook Link to Justice for Children with Congenital Heart DefectsLinks to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple PodcastsFacebookYouTubeInstagramWebsiteIf you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)
For decades the medical profession was engrossed in finding a way to help babies born with congenital heart defects to survive infancy and early childhood. It seemed relatively rare for babies born with complex congenital heart defects to become adults. Now there are more adults alive with congenital heart defects than infants being born with such birth defects. Therefore, a great deal of the focus of the medical field has shifted from that of "survival" to "quality of life." How can those in the medical field help Heart Warriors have a great quality of life? What resources are available for Heart Warriors? What role does anxiety and depression play in the world of a Heart Warrior? Is it common for adult Heart Warriors to suffer from post-traumatic stress disorder? If so, who can help them? Today's Guest is Adrienne Kovacs, Ph.D. She works at the Knight Cardiovascular Institute at Oregon Health & Science University where she established and is the director of the Behavioral Cardiovascular Program. She will answer the questions posted above and much, much more!Support the show (https://www.patreon.com/HearttoHeart)
In this episode of the Join Justin Podcast, we speak with Marc Marra Founder of Heart Warriors Inc. Learn about the great work Heart Warriors Inc. is doing to support those battling congenital heart disease and their families. We discuss what Marc and his family have gone through and how you can help by attending Charlotte's Heartiversary Fundraiser for Heart Warriors.Congenital heart disease (CHD) is the birth defect most likely to result in infant death. Approximately 25% of children born with CHD need heart surgery or other intervention to survive. By spreading awareness, HEART WARRIORS helps raise funding for research that will save countless lives. HEART WARRIORS is organizing multiple projects to benefit children with congenital heart disease. Marc Marra FounderHeart Warriors Inchttps://www.heartwarriorsinc.com/https://www.facebook.com/HeartWarriorsInchttps://www.facebook.com/events/984660309029054Nepola Yonta Attorneys at Lawhttp://www.nepolayonta.com/https://twitter.com/MrNepolahttps://www.instagram.com/mrnepola/https://www.facebook.com/NepolaYonta/Subscribe to the Join Justin Newsletterhttps://us15.list-manage.com/subscribe?u=2bda1bc09c964d3f035c16dbd&id=e9850b4d19
Annie Ulchak is a unique Heart Warrior. Born in Lima, Peru in 1979 with nomenclature HLHS, she came to the United States for life-saving surgery, after she was adopted. She joins Anna on this episode of "Heart to Heart with Anna" to talk to her about what her medical journey has been like, what complications she has encountered as an adult, and how she has taken control of her medical life.In the 3rd segment, Annie mentions creating a medical history that Heart Warriors can keep with them. Here is a link to the Adult Congenital Heart Association page which helps adults build a convenient History Passport: https://www.achaheart.org/media/1215/php2018web.pdfPlease visit our Social Media and Podcast pages:Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)Facebook (https://www.facebook.com/HearttoHeartwithAnna/)YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)Instagram (https://www.instagram.com/hugpodcastnetwork/)If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)Support the show (https://www.patreon.com/HearttoHeart)
You’ve been gifted the gift of pain, chaos, calamity. Have you built an armor of Love and Balance or an armor of more blockages? 2020 asks where my warriors at?
Dr. C. Huie Lin is the Director of the Adult Congenital Heart Program at Houston Methodist Hospital. Dr. Lin earned his Ph.D. and M.D. from the University of Virginia. His residency was done at Beth Israel Deaconess Medical Center in Boston and he completed his fellowship work in Adult Congenital - Adult Interventional Cardiology at Washington University-Barnes-Jewish Hospital. Dr. C. Huie Lin specializes in the care of adults with congenital heart defects. He is certified in the care of adults with congenital heart defects -- which is a fairly new specialization. Dr. Lins’s research work is focused on surgical intervention in congenital heart disease and adult congenital heart disease programs. Along with medicine, Dr. Lin also helped to establish the Adult Congenital Heart Symposium, a regional Houston conference which is held every year. In this episode of Heart to Heart with Anna, Dr. Lin shares with Anna what to expect at the 5th Annual Adult Congenital Heart Symposium. He talks about why the symposium was created by him and Dr. Ari Cedars. He explained their goals with providing the community with an opportunity for doctors, parents, Heart Warriors and anyone else in their lives to all come together to learn about topics of interest to those living with congenital heart defects.For the Houston Methodist YouTube channel go here: https://www.youtube.com/channel/UCb8PGmJ6SILfyOvOWJvHZIgUse this link for the playlist of last year’s Adult Congenital Heart symposium: https://www.youtube.com/playlist?list=PLZpDzANLjPtWXE2mv8oWSEMuEtteQhElHTo register for this year's Adult Congenital Heart Symposium, use this link: http://events.houstonmethodist.org/events/5th-annual-adult-congenital-heart-symposium/event-summary-da59d4fc2cf04f4cbb6d2828b55fb2d2.aspxPlease take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)
Mended Little Hearts National Program Director Jodi Smith joins Anna in this episode to discuss the upcoming 2019 Mended Little Hearts Symposium and Leadership Summit in Milwaukee, Wisconsin. The Leadership Summit will occur on July 12th and the Symposium will occur on July 13th. You can register for the event here: https://mendedhearts.org/chd-symposium/In this episode, Jodi tells Anna about how the Keynote Speaker was selected, why people should attend the Leadership Summit and Symposium and what benefits they can derive from attending. She details what it has been like for her as a parent of a child with a heart defect and how others can not only help themselves but help others, too, by being part of this organization.With professional training from Parent-to-Parent of Wisconsin and Ex Fabula, the Leadership Summit will be a must-attend event for those who wish to promote congenital heart defect awareness. The symposium will feature speakers and panel discussions sure to assist parents and Heart Warriors alike.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)
Dr. Ami Bhatt is the featured Guest on this episode of Heart to Heart with Anna. Dr. Ami Bhatt is an active clinical cardiologist, clinical investigator, and educator. She has developed a robust multidisciplinary curriculum at Mass General to provide requisite ACHD education to cardiovascular fellows. Dr. Bhatt is dedicated to patient advocacy groups including the AHA and Adult Congenital Heart Association and empowering individuals with CHD to lead full and productive lives.In this episode, Anna talks with Dr. Bhatt about becoming an adult congenital cardiologist specializing in the care of adults with CHDs, why she developed a telemedicine program for her patients and where she believes the future of medicine is headed. You won't want to miss this show which discusses an up-and-coming trend to prevent Heart Warriors from being lost to follow-up care.Support the show (https://www.patreon.com/HearttoHeart)
In this episode of Heart to Heart with Anna, Dr. Liza Morton rejoins Anna to talk more about polyvagal theory, how feeling safe is important to those born with congenital heart defect, especially when they are in vulnerable conditions (such as when they're facing hospitalizations or experimental procedures) and how understanding the embodiment of their experiences can be both empowering and healthy. She also addresses how Heart Warriors may come to experience at least one kind of Post-Traumatic Stress Disorder (PTSD). She even relates how older Heart Warriors may have experienced attachment problems due to common medical practices in the 1950s, 1960s and even 1970s or 1980s. To find out what kind of PTSD circumstances are common for those born with congenital heart defects and what they can do about it, tune in to this episode of Heart to Heart with Anna.Support the show (https://www.patreon.com/HearttoHeart)
This week's featured episode discusses a very important topic -- transitioning our Heart Warriors from dependents to advocates -- and it doesn't happen overnight. Lisa Rodebaugh does an excellent job of sharing how she raised Andrew Rodebaugh so that he could become his own best advocate but this show is about so much more than that! Tune in to hear how Andrew Rodebaugh is not only an advocate for himself but also an inventor working to make life better for people everywhere with his creative and practical app. You won't want to miss this fast-paced show from Philadelphia, PA at the Podcast Movement!Support the show (https://www.patreon.com/HearttoHeart)
Surviving and living with CHD through the eyes of a CHD survivor Annie. Annie has just turned one and was born with 3 heart defects. Annie's mum Angie shares Annie's story with us all to help us all learn more about CHD and we hope her story may provide support to those that are also struggling on a similar journey. For all the many Heart Warriors out there, for those that have sadly passed and for those that everyday fight strong - Your courage is inspirational and you are amazing! For CHD Support: In Australia - www.heartkids.org.au In the US - www.heart.org All around the world, in many citites there are wonderful CHD organisations offering help and support - just search online and CHD support is never too far away.
Roger Potter was born in the 1940s -- a critical time in the era of open-heart surgery because it was in 1944 that Dr. Blalock and Dr. Taussig performed the first operation to save a "blue baby." Roger was one of the original "blue babies" saved by this pioneering open-heart surgery. Listen today as Roger shares with Anna what it was like for him growing up with a congenital heart defect, what he feels doctors did right when he was growing up that perhaps should be reconsidered for today's Heart Warriors and what it means to him to be a Cardiac Athlete™. Lars Andrews' wrote a book, Cardiac Athletes which has stories about athletes who have endured cardiac surgeries (https://smile.amazon.com/Cardiac-Athletes-Superheroes-Beating-Disease/dp/0993038905/ref=sr_1_2?ie=UTF8&qid=1509401650&sr=8-2&keywords=lars+andrews+cardiac+athlete). Lars Andrews is working on the 2nd book in this series and Roger Potter has contributed an essay to this book.Support the show (https://www.patreon.com/HearttoHeart)
Today Jessica Gutierrez-Rodriguez talks with us about how she has discovered her single-ventricle heart warrior's hidden talents. She also shares with us Marianne's early years and some of the challenges she's had to overcome. Jessica shares how she has come to discover her daughters' hidden talents and how she and her family have worked to foster her daughters' talents. She gives advice to all parents about what they can do to help their Heart Warriors find something to be passionate about to enrich their lives.Support the show (https://www.patreon.com/HearttoHeart)
It's back-to-school time and "Heart to Heart with Anna" wants to make sure that Heart Parents are prepared to send their Heart Warriors back to school! Enjoy today's program with Lisa O'Connor, a special education advocate. Lisa shares with Anna some of the accommodations that many children with special needs have and how Heart Warriors need an Individualized Health Care Plan. Tune in to hear Lisa share her experience working with special needs families so you can be a strong advocate for your child!Support the show (https://www.patreon.com/HearttoHeart)
What happens when our Heart Warriors age out of high school but are not ready for college or trade school? What can parents do to prepare their children for adulthood when cognitively they may not be where their peers are? Join us today as Kathy Keller shares her experiences and advice with us! Kathy's Heart Warrior, Garrett, was born with hypoplastic left heart syndrome and has had strokes, plastic bronchitis a heart transplant and has benefitted from many special programs that are enabling him to have a quality life as an adult. Tune in to hear about challenges Garrett has faced, how his entire family has come together to help him lead a quality of life and preparations Kathy has made to ensure Garrett will be taken care of far into the future.Support the show (https://www.patreon.com/HearttoHeart)
Season 10 of Heart to Heart with Anna is focused on educational issues but almost all of the programs have dealt with Heart Warriors in the United States. Join us with this program as we go Down Under to talk with an Australian Heart Warrior and what she experienced growing up with a congenital heart defect. Did Megan have the same kind of experiences her American counterparts had? What advice does Megan have for others in the Heart Community? What kind of things did Megan's parents do which she felt have helped her in her adult life? Tune in for the answers to these questions and more!Support the show (https://www.patreon.com/HearttoHeart)
It is a commonly known fact in the congenital heart defect (CHD) community that now there are more adults alive with CHDs than babies being born. That means we have more people reaching adulthood than ever before and that means that more people than ever before have had to make the transitions from infancy to adulthood with a special heart. What does that mean for children born with critical congenital heart defects? What special struggles might they face? How can parents help their children to transition over the course of their lives? What do parents need to do to help their children become independent and successful? If infants are diagnosed as a "special needs children" will they ever be able to shake that label to live "normal" lives? Vicki Lucas, special educator and Heart Mom, shares her stories about watching her son, Alex (born with hypoplastic left heart syndrome or HLHS) go from infancy to adulthood. She expounds upon some of the struggles Alex endured and how he has achieved success as an adult. You won't want to miss this inspiring program.Support the show (https://www.patreon.com/HearttoHeart)
This season we're focusing on education for Heart Warriors and today's show exemplifies how learning is a life-long process. Today's show deals not only with how Heart Warriors can continue their eduation about congenital heart defects (CHDs), but how the entire CHD community can continue to become better education about heart issues. Perhaps even more importantly, today's episode speaks directly to how the CHD community can grow by having families and the professionals who serve them come together. Find out how the Atlantic Canadian region services their CHD community through the development of support groups (both online and face-to-face), conferences and summer camps specifically for Heart Warriors. Today's Guest is Heart Mom and Braveheart Support Society Founder, Yarrow Gillis. She'll entertain us with stories about the growth and development of multiple resources for the CHD community and how Listeners can take advantage of those resources, even if they don't live iSupport the show (https://www.patreon.com/HearttoHeart)
Many years ago, when people were diagnosed with congenital heart defects, their doctors warned parents about the dangers of allowing their children to cry, to become upset or to exert themselves. What have doctors learned from those early pioneers in the realm of congenital heart disease (CHD)? How has the medical world come to view CHD Warriors' needs to take part in physical activities? What kind of activities are common amongst children who survive childhood with funky hearts? What can children, and adults alike, expect if they over-exert themselves? What kind of activities was our Guest, Jennifer Weiner, able to enjoy? How has her enjoyment for physical activities changed over time? Join us for the answers to these questions and much, much more!Support the show (https://www.patreon.com/HearttoHeart)
People who are born with congenital heart defects (CHDs) are at greater risk for having a TIA (mini-stroke or transient ishcemic attack) or stroke. A stroke occurs when there is bleeding into the brain (hemorrhagic stroke) or a blood clot blocking blood going into (or through) the brain -- which is called an ischemic stroke. Many people who have CHDs have rhythm problems and these electrical problems with the heart can lead to TIAs or strokes. Additionally, some people with CHDs have valve problems, holes in their hearts or heart failure. All of these conditions create an environment that is conducive to the formation of blood clots or blockages which could lead to a stroke. This is why it's extremely important for people with CHDs to be aware of the warning signs of strokes or TIAs. Carol Raimondi, a CHD and Stroke Survivor, is today's Guest Host. She interviews TIA survivor, Frank Lynn, and Stroke Survivor, Terese Quarino, about what happened to them when they suffered their neurological event, what warning signs presented themselves, how the Survivors reacted to those warning signs and what advice they have for other Heart Warriors. This is a very important topic for all Heart Warriors and their families. For more information about CHDs and strokes, check out this webpage: https://www.verywell.com/heart-disease-that-leads-to-stroke-4083060.Support the show (https://www.patreon.com/HearttoHeart)
Now that more Heart Warriors are surviving to adulthood than ever before, there is a growing cohort of individuals actually entering middle age. So for the first time ever, there is a group of female Heart Warriors who are actually experiencing the consequences of aging. What happens when female Heart Warriors enter menopause? Are there special considerations that need to be taken for Heart Warriors who are peri-menopausal, menopausal or post-menopausal? What symptoms are typical? Are there physiologic differences that happen to women who have experienced multiple open-heart surgeries? What kind of symptoms should female Heart Warriors be aware of? What groups of medical professionals can help female Heart Warriors who might worry they are experiencing menopause? Tune into today's show to hear Guest Host, Heart Warrior Laura Ryan, as she interviews fellow Heart Warrior, Kathy Ware, about this very important topic.Support the show (https://www.patreon.com/HearttoHeart)
Today's show features two Heart Warriors -- Guest Host Carol Raimondi and Guest Roslyn Rivera. Both of these Heart Warriors decided to go into nursing. Tune in to hear why Carol (a cc-TGA Heart Warrior) and Roslyn (an partial atrio-ventricular septal defect and mitral valve replacement Survivor) became nurses, how the job made them view their own heart defects and what changes had to be made in their lives over time regarding the stress and strain of being a nurse. Now that more babies with congenital heart defects are surviving to adulthood than ever before, it's more likely that some Heart Warriors will go into the medical field. Discover what these two Heart Warriors think about other Heart Warriors entering the medical field and what their own experiences have been like.Support the show (https://www.patreon.com/HearttoHeart)
Dr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson and his team are specifically interested in the cause of hypoplastic left heart syndrome (HLHS) and finding ways to delay and prevent heart failure for individuals with HLHS. To better understand and treat this congenital heart disease, the program has taken a multifaceted approach that includes research into stem cells, genetics, imaging tools, and the creation of a biorepository. The program has launched clinical trials using autologous stem cells, also known as stem cells collected from an individual’s own body. In today's program, Dr. Nelson talks with Anna about the research that is being conducted at Mayo Clinic for both infants and adults. He talks about who can participate, how to find out more information and how people can contact his program for more information. Dr. Nelso also talks with Anna about where he believes the future of stem cell therapy and research is headed.Support the show (https://www.patreon.com/HearttoHeart)
Hypoplastic left heart syndrome (HLHS) is a critical congenital heart defect -- meaning that surgery within the first year of life is necessary to survive. Several decades ago, HLHS was uniformly fatal (except in some very rare cases) and most infants died within the first month of life. Since the 1980s there have been efforts made to save babies with HLHS. The results have been amazing. Now the success rate for babies born with HLHS is at an all-time high. What advancements have been made? What current treatments are most promising? What new treatments are on the horizon? Dr. Edward L. Bove is known throughout the world as "the man with the golden hands" because of his surgical skill working on babies with critical congenital heart defects. He joined the faculty at the University of Michigan as director of Pediatric Cardiovascular Surgery and became Head of the Section of Cardiac Surgery in 1999. He has given hundreds of presentations on heart surgery around the world. He has served on numerous committees including the American Heart Association, the Society of Thoracic Surgeons, the American Association for Thoracic Surgery, and the American Board of Thoracic Surgery. Dr. Bove serves on a number of editorial boards, has published over 300 manuscripts, dozens of book chapters, and edited two books. Dr. Bove is Anna's featured Guest today and he'll answer the questions posed above and much, much more! If you, or someone you love, has HLHS, you won't want to miss this program!Support the show (https://www.patreon.com/HearttoHeart)
Last week we met Dr. Gil Wernovsky, a renowed pediatric cardiologist who has dedicated 30 years to treating babies born with congenital heart defects. We talked about a new approach that he designed by working collaboratively with doctors, nurses and parents. What he created was a "roadmap" for treating those babies born with the most complex heart defects. Last week we talked about why he created the roadmap, how it was similar to a maintenance program that is used for automotive care and how it was inspired by the board game Life. In today's broadcast we delve deeper into why this roadmap concept is so important. We talk about what palliative care means in a medical setting and how that term is used differently for children with heart defects than with children who have cancer. We talked about Dr. Wernovsky's passions. As a bonus, Dr. Wernovsky talked about his passion for music and how he has found that many others in the heart community share his passion for music. He introduces us to the Baby Blue Sound Collective and we even get to enjoy a song from the new CD that has been created and is being distributed just in time for Heart Month 2017. Home. Tonight. Forever. is the name of the CD that Dr. Wernovsky created with his band the Baby Blue Sound Collective. He shares with us how the money from the sale of the CD goes to fund congenital heart defect research. Finally, Dr. Wernovsky shares his own personal advice about moving forward while living with a critical congenital heart defect. He discusses what parents need to do to help their children become involved and educated adult Heart Warriors. He also talks about how to maintain medical records that, hopefully, this roadmap concept will enhance. You won't want to miss this program!Support the show (https://www.patreon.com/HearttoHeart)
Rev. Patrick speaks on the importance and power of forgiveness, and prepares us for the September 11 "Peace in the Park" event. Forgiveness is not for the enemy---it is for us. In addition, the other side of forgiveness is atonement. As spoken by Desmond Tutu, forgiveness makes the future possible, while atonement makes the present possible.