Podcasts about Neuroblastoma

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  • 239EPISODES
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  • 1EPISODE EVERY OTHER WEEK
  • May 5, 2025LATEST
Neuroblastoma

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Best podcasts about Neuroblastoma

Latest podcast episodes about Neuroblastoma

Help and Hope Happen Here
Danielle Phillips will talk about her daughter Angelina who was diagnosed with Stage 4 Neuroblastoma when she was 3 1/2 years old in 2013 and passed away from this very difficult form of Pediatric Cancer in February of 2020.

Help and Hope Happen Here

Play Episode Listen Later May 5, 2025 85:24


When 3 1/2 year old Angelina Phillips was diagnosed with Stage 4 Neuroblastoma in 2013, one oncologist actually thought that her diagnosis was so bad that her mom Danielle should consider not even giving her treatment, Angelina did receive treatment which included 3 relapses and was able to go on some memorable trips during her battle which ended with her passing just before Covid began in late February of 2020. 

Help and Hope Happen Here
Gavin and Wendy Lindberg will talk about their son Evan who was diagnosed with Stage 4 High Risk Neuroblastoma when he was 3 years old in 2006 and passed away after his very difficult treatment in October of 2010.

Help and Hope Happen Here

Play Episode Listen Later Apr 28, 2025 81:35


Gavin and Wendy Lindberg's son Evan was diagnosed with Stage 4 High Risk Neuroblastoma in 2006 when he was 3 years old. His diagnosis came on very quickly and his cancer spread very quickly. As I said on our podcast, anyone would need a strong stomach just to read about the litany of issues that Evan had to go through before his passing in October of 2010 including trips to 4 different hospitals, 4 relapses, and 4 brain surgeries. 

The Ray Hadley Morning Show: Highlights
'Bloody champion' - The monster walk raising funds for Neuroblastoma Australia

The Ray Hadley Morning Show: Highlights

Play Episode Listen Later Apr 24, 2025 10:06


Luke Grant chats with Kevin Apps, who is currently walking from Melbourne to Brisbane to raise money for children diagnosed with neuroblastoma cancer. He spoke to Luke about his goal and the reason behind it, after his close mate’s two-year-old grandson was diagnosed last year.See omnystudio.com/listener for privacy information.

Help and Hope Happen Here
Amy McHugh will talk about her daughter Emily who was diagnosed with Stage 4 High Risk Neuroblastoma before her 4th birthday in 2009 and now is a Sophomore in college.

Help and Hope Happen Here

Play Episode Listen Later Apr 21, 2025 64:33


Emily McHugh went through a very difficult treatment protocol after being diagnosed with Stage 4 High Risk Neuroblastoma in 2009 before she turned 4 years old. Originally Emily was thought to have had Leukemia. Emily also has had to deal with many side effects from her treatment but still has been able to live as good of a life as possible as she is now a sophomore in college, and will be spending her next academic year at Trinity College in Dublin, Ireland. 

Faithspotting
Faithspotting "Audrey's Children"

Faithspotting

Play Episode Listen Later Mar 31, 2025 25:57


Kenny and Mike review, spot faith elements, and interview Natalie Dormer who stars as pioneering pediatric oncologist Audrey Evans in the biopic film Audrey's Children. Audrey Evans became Director of the Pediatric Oncology department at the renowned Children's Hospital of Philidelphia (CHOP) in 1969, and was a trailblazer as both the first department chief and one who introduced new methods for tracking and treating pediatric cancer.  As a hospital with a strong national reputation, parents brought their children from all over the region and country. Out of concern for the parents who were often forced to sleep on the floor of the Oncology ward, Audrey purchased a home that could be used to offer free housing for parents.  This home and program grew into the Ronald McDonald House Charities.  Clancy Brown Co-stars as Dr. C. Everett Koop who served as chief of pediatric surgery at CHOP and was responsible for recriting Dr. Evans. Koop who would later serve as U.S. Surgeon General supported Dr. Evans in the early years of her career including her development of the Evans Staging System which charted Neuroblastoma disease progression and allowed for the most effective treatments.        Faith Spotted: Faith grounded Audrey and inspired her to confront successfully the challenges and roadblocks she encountered as a trailblazing female department chair with new diagnostic and treament procedures.  The film speaks to the purpose and power of calling and the transformative impact it can have in the lives of others. Audrey's calling was to serve children and families in the midst the most difficult circumstances. The film lifts up the importance of children echoing the teaching of Jesus to remove any barriers to children fully living into the life of their community and deserving of the attention of God. Audrey's story reflects the call to live one's life to the fullest, utilizing the gifts and talents God has given. Life is not to be wasted.          

Help and Hope Happen Here
Ryan and Courtney Cotton will talk about their daughter Julianna, her Neuroblastoma diagnosis, how long it took to get her diagnosis, and how she is doing today.

Help and Hope Happen Here

Play Episode Listen Later Mar 20, 2025 61:26


After a long period of time with severe stomach pain, Ryan and Courtney Cotton's daughter Julianna had to go through a test which completely missed an 11 cm tumor which was covering 70 percent of her belly before she finally received a proper diagnosis of Neuroblastoma in early 2022. Now 3 years later, Julianna has recovered from 2 relapses, currently has No Evidence of Disease , and is living the life of a normal 6 year old girl. 

Help and Hope Happen Here
Taryn Jarboe will talk about her beloved daughter June who was diagnosed with Neuroblastoma in June of 2021, experienced a 6 month respite with No Evidence Of Disease, but passed away on March 13th of 2022

Help and Hope Happen Here

Play Episode Listen Later Mar 10, 2025 59:22


Taryn Jarboe was trying to console her 8 month old daughter June in June of 2021 as she had not been feeling well, and while examining her body, found a lump that was diagnosed as Neuroblastoma. June was supposed to go through an 18 month treatment program but while she was 10 months into her protocol, June developed a stomach bug and just before the radiation part of her treatment was supposed to begin, her doctors gave June scans which found that her Neuroblastoma had relapsed. Very unfortunately, there was only a 5 percent chance that June would survive this relapse and she passed away on March 13th of 2022. 

Historia de Aragón
Una terapia CAR-T mantiene viva a una niña con neuroblastoma 18 años después

Historia de Aragón

Play Episode Listen Later Feb 18, 2025 22:36


Una mujer con neuroblastoma que fue tratada con células CAR-T cuando era una niña, permanece en remisión 18 años después. Es el caso de mayor duración tras una terapia de este tipo descrito hasta la fecha. Los resultados se publican en la revista Nature Medicine. Diego Sánchez, investigador ARAID en el Instituto de Investigación Sanitaria Aragón, explica este caso, y las perspectivas de Aragón en estas terapias. Además, Ágora conversa con Martín Resano, coordinador del grupo Métodos Rápidos de Análisis con Técnicas Espectroscópicas (MARTE) e investigador del I3A reconocido en Europa por su labor en el ámbito de la espectroquímica del plasma.

Historia de Aragón
Una terapia CAR-T mantiene viva a una niña con neuroblastoma 18 años después

Historia de Aragón

Play Episode Listen Later Feb 18, 2025 22:36


Una mujer con neuroblastoma que fue tratada con células CAR-T cuando era una niña, permanece en remisión 18 años después. Es el caso de mayor duración tras una terapia de este tipo descrito hasta la fecha. Los resultados se publican en la revista Nature Medicine. Diego Sánchez, investigador ARAID en el Instituto de Investigación Sanitaria Aragón, explica este caso, y las perspectivas de Aragón en estas terapias. Además, Ágora conversa con Martín Resano, coordinador del grupo Métodos Rápidos de Análisis con Técnicas Espectroscópicas (MARTE) e investigador del I3A reconocido en Europa por su labor en el ámbito de la espectroquímica del plasma.

Help and Hope Happen Here
Nancy Whipple will talk about her son Alexander who was diagnosed with Stage 4 Intermediate Risk Neuroblastoma in March of 2010 and passed away on April 1st of 2011

Help and Hope Happen Here

Play Episode Listen Later Feb 13, 2025 59:02


Nancy and Richard Whipple's son Alexander spent 250 days as an inpatient at Tufts Floating Hospital for Children beginning in 2010 as a result of his Neuroblastoma diagnosis in March of 2010 when he was 8 months old.  Alexander battled for 13 months with his form of Pediatric Cancer and 2 of his stays lasted for 46 and 38 days respectively. Alexander passed away on April 1st of 2011, after a 16 hour surgery which did not work out as planned. 

Help and Hope Happen Here
Allison Donnelly will talk about her daughter Sloane who was diagnosed with Neuroblastoma in October of 2022 at the age of 2, has been in remission for 18 months, and is now 4 years old and doing well.

Help and Hope Happen Here

Play Episode Listen Later Jan 27, 2025 45:29


The name Sloane means WARRIOR in Irish and it is no wonder that this now 4 year old girl was given that name by her parents Allison and Eric Donnelly. Sloane was diagnosed with Neuroblastoma when she was 2 years old in October of 2022 after her belly seemed to be bulging, which caught the attention of her parents while they were giving her a bath. Sloane now has been in remission for 18 months and is doing as well as possible. 

Help and Hope Happen Here
Jola Tapper's then 5 year old son Peter was diagnosed with Stage 4 Neuroblastoma in October of 2011, had No Evidence Of Disease in April of 2012, and 7 1/2 years later relapsed in December of 2019

Help and Hope Happen Here

Play Episode Listen Later Jan 16, 2025 61:01


After Jola Tapper's son Peter was diagnosed when he was 5 years old with Stage 4 Neuroblastoma in October of 2011, he went through a difficult treatment protocol which took him to having No Evidence of Disease on April 12th of 2012. For the next 7 1/2 years, even though he had difficulties, Peter was able to lead as normal and good of a life as possible. Then came December of 2019 and he relapsed by being diagnosed with Synovial Sarcoma. Peter was able to survive for the next 25 months, until his ultimate passing on January 17th of 2022, just 25 days before his 16th birthday.

While We're Waiting - Hope After Child Loss
238 | She Died, I Didn't (Part Two) with Courtney Mount

While We're Waiting - Hope After Child Loss

Play Episode Listen Later Jan 15, 2025 33:02


Today's episode is a continuation of my conversation with Courtney Mount, whose daughter Millie died from neuroblastoma cancer in July of 2020.   Courtney is a homeschooling mom of nine, a blogger, a freelance writer, and the author of the children's book "Millie Finds her Miracle" and the "Embracing a Miracle" devotional journal.  Her latest book is titled “She Died, I Didn't:  A Mother's Story of Surviving Grief, Sustaining Faith, and Recognizing Miracles Along the Way.  Today, we reflect on the challenges of returning to church after the loss of a child, grief in the context of marriage, honoring our children's memories while giving ourselves permission to let go of some traditions, the impact grief can have on our health, and the process of becoming a writer.   I believe our wide-ranging conversation will help you see that there truly is hope to be found after child loss, and that it is possible to live a full life even in the shadow of grief.  I'm glad you've joined us today …Click HERE to listen to the first half of today's conversation with Courtney.   Click HERE to listen to the first half of my previous conversation with Courtney, and click HERE to listen to the second half. Click HERE to purchase a copy of "She Died, I Didn't" on Amazon.  It's available in paperback, hardback, and Kindle versions.Click HERE to purchase a copy of "Millie Finds Her Miracle" on Amazon. Click HERE to purchase a copy of the "Embracing a Miracle" devotional and companion journal.  I would love to hear your thoughts on the show. Click here to send me a message!** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry. We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at: jill@whilewerewaiting.org

While We're Waiting - Hope After Child Loss
237 | She Died, I Didn't (Part One) with Courtney Mount

While We're Waiting - Hope After Child Loss

Play Episode Listen Later Jan 8, 2025 33:11


I'm excited to welcome another return guest to the podcast today, my friend Courtney Mount, whose daughter Millie went to Heaven in July of 2020 following a battle with neuroblastoma cancer.  Courtney is a homeschooling mom of nine, a blogger, a freelance writer, and the author of the Millie Finds her Miracle collection.  Her latest book is titled "She Died, I Didn't:  A Mother's Story of Surviving Grief, Sustaining Faith, and Recognizing Miracles Along the Way."  It's so easy, after the loss of child, to feel that everything good in your life has died … honestly, leaving some parents to wonder if life is still worth living.  I believe my conversation with Courtney over the next two episodes will help you see that there truly is hope to be found, and that it is possible to live a full life, even in the shadow of grief.  I'm glad you're here … Thanks for listening in!  Click HERE to listen to the first half of my previous conversation with Courtney, and click HERE to listen to the second half.  Click HERE to purchase a copy of "She Died, I Didn't" on Amazon.  It's available in paperback, hardback, and Kindle versions.Click HERE to purchase a copy of "Millie Finds Her Miracle" on Amazon.  Click HERE to purchase a copy of the "Embracing a Miracle" devotional and companion journal.  I would love to hear your thoughts on the show. Click here to send me a message!** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry. We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at: jill@whilewerewaiting.org

Help and Hope Happen Here
Trista Temimi will talk about her daughter Valeria who was diagnosed with Neuroblastoma after a long wait in January of 2024, and is now nearly one year into her battle against this form of Pediatric Cancer.

Help and Hope Happen Here

Play Episode Listen Later Dec 16, 2024 72:13


Trista Temimi's daughter Valeria was born on September 11th of 2023 and immediately began having health issues. It took until January of 2024 to finally receive her diagnosis of Neuroblastoma. Since that time, Valeria has been battling this pediatric cancer and today, December 16th, she is undergoing scans to see how she is doing, with the hope being that she is at least stable and hopefully the news will be even better than that for this 15 month old little girl. 

Code WACK!
Coverage denied: A doctor's fight to save her own baby

Code WACK!

Play Episode Listen Later Dec 2, 2024 18:01


This time on Code WACK! Imagine learning that your baby girl has a brain tumor that's causing seizures and disrupting her development, and your health insurance company is denying coverage for the treatment her pediatric oncologist says she needs to survive and thrive? What would you do? Where did one mother turn when repeated health insurance denials delayed time-sensitive treatment to shrink her baby's tumor?  To find out, we spoke to Dr. Eunice Stallman, a psychiatrist in Idaho and clinical faculty at the University of Washington School of Medicine and the University of Washington Boise Psychiatry Residency Program. Her daughter Zoey is two years old now and still undergoing medical treatment. This is the first episode in a two-part series. Check out the Transcript and Show Notes for more!  

Help and Hope Happen Here
Amiee Mittleman will talk about her son Julian who was diagnosed with Stage 4 High Risk Neuroblastoma in December of 2022, and after 7 months of treatment was told that there was No Evidence of Disease in July of 2023.

Help and Hope Happen Here

Play Episode Listen Later Oct 17, 2024 46:51


Amiee Mittleman was told about a group of parents that had children who had been diagnosed with Neuroblastoma in 2023. This group had formed an organization called Band of Parents.  After doing her research Amiee joined the group and was fortunate enough to connect with a doctor that had discovered an antibody for Neuroblastoma patients. Amiee's then 2 1/2 year old son Julian had been diagnosed with Stage 4 High Risk Neuroblastoma in December of 2022 and during his treatment in 2023, this antibody was given to Julian. In July of 2023, Julian had No Evidence of disease, and now, 14 months later, that designation still stands. Amiee now serves on Band of Parents Board of Directors. 

Momsday Bunker
Loneliness is a soul sucker!

Momsday Bunker

Play Episode Listen Later Oct 16, 2024 18:01


Welcome to the Momsday Bunker. Today Keri walks the bunkmates through what loneliness looks like and how we combat it during a momsday moment. Building your community and spirituality is the number one thing to starve out loneliness. Listen as Keri talks about Neuroblastoma, childhood cancer, loneliness, Isaiah 41:10, fear, community, spirituality, spiritual warfare, anger, boundaries, motherhood, MAMA TRAUMA, young moms, young motherhood, and military families. If you like this episode and want to connect other Mama Trauma Survivors to the Momsday Bunker, please like and share!  Follow the Keri Momsday Prepper on Facebook and Keri_Henson_aka_Momsdayprepper for tips and tricks on preparedness. You can reach Keri at MomsdayPrepper

Help and Hope Happen Here
Megan Nelson will talk about her daughter Ella, who was misdiagnosed with the Kidney Cancer Wilms Tumor in 2020, and then just a few days later received her correct diagnosis of Stage 4 High Risk Neuroblastoma.

Help and Hope Happen Here

Play Episode Listen Later Sep 30, 2024 57:57


Megan Nelson's mom felt an odd lump as she was hugging her 2 year old granddaughter Ella before returning home after Megan had given birth to her son Francis in 2020. Upon hearing this, Megan took Ella to her pediatrician and shortly thereafter she was diagnosed with the Kidney Cancer Wilms Tumor before this diagnosis was changed 3 days later to Stage 4 High Risk Neuroblastoma. Megan and her family were living in Virginia at the time but moved to Los Angeles so Ella could get her treatment at the Children's Hospital of Los Angeles. Now 4 years later, Ella is doing well and is living her best life possible. 

The Wire - Individual Stories
Adelaide family raising funds for son with neuroblastoma

The Wire - Individual Stories

Play Episode Listen Later Sep 5, 2024


Momsday Bunker
Welcome Back Coach Margaret; A conversation about gremlins, momsday moments, childhood caner and what healing looks like!

Momsday Bunker

Play Episode Listen Later Sep 4, 2024 45:00


Giddy Up! Here we go again, bunkmates! Welcome back Margaret McCormick from Third Chance Coaching. In this episode Keri and Margaret revisit Keri's first momsday moment; childhood cancer. Super G's journey with Neuroblastoma from the momma's perspective and how coaching would have 100% made going through it healthier! When momma is healthy, baby is healthier! We need to put our own oxygen masks on first before we can help those around us. We talk about childhood cancer, Neuroblastoma, cancer survivor, childhood cancer survivor, life coaching, coaching, the importance of drinking water, health, trauma, MAMA TRAUMA, healing from trauma, EMDR, Momsday Moments, and so much more!!  If you want to know more about life coaching please reach out to Margaret here ---> Third Chance Coaching You can find Margaret here too -->> Facebook  If you like this episode and want to connect other Mama Trauma Survivors to the Momsday Bunker, please like and share!  Follow the Keri Momsday Prepper on Facebook and Keri_Henson_aka_Momsdayprepper for tips and tricks on preparedness. You can reach Keri at MomsdayPrepper.

writing class radio
188: Making Room for Hope after My Daughter Died

writing class radio

Play Episode Listen Later Aug 21, 2024 18:12


Today on our show, we bring you a story by Farida Taha. Farida writes about losing her daughter to cancer and how she's moving forward. We talk a lot about loss on our podcast, because writing is how so many people process grief. We believe writing opens the heart, clears the mind, and helps us understand and process. In this essay, Farida throws out some incredibly poignant lines that reveal intense pain and so much hope for the future.Farida Taha is a writer and mother of three. She is originally from New York City and resides in Miami, FL. She is an avid listener and former writing class radio student. You can find her on Instagram @faridae.If you're looking for a writing coach to help your student with college application essays, contact Allison Langer.Writing Class Radio is hosted by Allison Langer and Andrea Askowitz. Audio production by Matt Cundill, Evan Surminski, and Aiden Glassey at the Sound Off Media Company. Theme music is by Justina Shandler.There's more writing class on our website including stories we study, editing resources, video classes, writing retreats, and live online classes. Join our writing community by following us on Patreon. If you want to write with us every week, you can join our First Draft weekly writers groups. You have the option to join Allison on Tuesdays 12-1 ET and/or Mondays with Eduardo Winck 8-9 pm ET. You'll write to a prompt and share what you wrote. If you're a business owner, community activist, group that needs healing, entrepreneur, or scientist and you want to help your team write better, check out all the classes we offer on our website, writingclassradio.com.Join the community that comes together for instruction, an excuse to write, and the support from other writers. To learn more, go to www.Patreon.com/writingclassradio. Or sign up HERE for First Draft for a FREE Zoom link.A new episode will drop every other WEDNESDAY. There's no better way to understand ourselves and each other, than by writing and sharing our stories. Everyone has a story. What's yours?See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Help and Hope Happen Here
Heather Roy will talk about her daughter Evelyn who was diagnosed with Stage 4 High Risk Neuroblastoma when she was 10 years old, which is much older than normal for this form of pediatric cancer and passed way 18 months later in February of 2020

Help and Hope Happen Here

Play Episode Listen Later Aug 5, 2024 78:08


Heather Roy's 10 year old daughter had just completed a 10 K road race and was seemingly very healthy in September of 2018 except for a nagging pain in her right side that would not go away. This pain, thought to possibly be appendicitis, turned out to be Stage 4 High Risk Neuroblastoma, which was diagnosed at a much older age than this form of pediatric cancer is normally diagnosed. Evelyn struggled for 18 months with this disease before passing away in February of 2020.

Help and Hope Happen Here
Ramona Jarvis will talk about her daughter Lelia who was diagnosed with Stage 4 High Risk Neuroblastoma in the summer of 2017 when she was 19 months old, and is now 7 years past her original diagnosis and is living her best life possible.

Help and Hope Happen Here

Play Episode Listen Later Jun 20, 2024 45:15


When Ramona Jarvis's 19 month old daughter Leila was running on and off fevers, she was told by Leila's doctors that these were caused by viruses and that her fevers would go away. Unfortunately that was not the case and during that summer of 2017 , Leila was diagnosed with High Risk Stage 4 Neuroblastoma. After a harrowing regiment of treatments which included 132 days of being an inpatient, Leila was put on a DFMO Clinical Trial at the Arnold Palmer Children's Hospital in November of 2018 which ended in 2020. Today, Leila is 4 years past this Clinical Trial and thankfully is both doing and feeling well. 

Raise the Line
A Mother's Perspective on Childhood Cancer: Bethan Keall

Raise the Line

Play Episode Listen Later May 2, 2024 20:37


Today's Raise the Line guest has a simple but powerful message for medical providers, born of a mother's heartbreak. “It's going to be rare in your career to meet a zebra but the impact you can have is phenomenal. An early diagnosis could make the difference between life and death for these children,” says Bethan Keall who lost her young daughter Matilda (Tilly) in 2022 to neuroblastoma, a rare cancer most commonly found in children. Because some symptoms of the disease can be easily attributed to other causes, early diagnosis is difficult, particularly if providers are not on the lookout for it. Tilly's diagnosis of an aggressive form of neuroblastoma introduced Bethan and her husband to the unfortunate realities of a lack of funding and coordination in the UK around pediatric oncology. “For childhood cancer you really need as much collaboration among doctors as possible to understand how treatments can get better because there are relatively few cases,” she explains to host Lindsey Smith. In coping with Tilly's tragic death at the age of four, her parents have dedicated themselves to Neuroblastoma UK to support research efforts and have benefitted from the emotional and social support provided by a charity called Jak's Den, founded by the family of a victim of childhood cancer. This is a wrenching, illuminating episode in our Year of the Zebra series offering important insights from a parent's perspective for providers and policymakers alike. Mentioned in this episode: Jak's Den https://www.teamjak.org.uk/Neuroblastoma UK https://www.neuroblastoma.org.uk/ 

Head Game
Persevering After an Unthinkable Diagnosis

Head Game

Play Episode Listen Later Apr 23, 2024 49:10


Michael Crossland has been a fighter since birth. He defied the odds of surviving Neuroblastoma - a rare life-threatening cancer, and was the sole survivor of a cancer drug trial.  He speaks to Ant about his lifetime of challenges and lessons. When the odds are stacked against him, time after time - Michael defies those odds. And, he's on a journey to inspire others along the way.  LINKS Learn more about Michael Crossland at michaelcrossland.com Follow Michael on Instagram @michaelcrossland Follow Ant on Instagram, X, and Facebook Learn more about Ant on his website antmiddleton.com Follow Nova Podcasts on Instagram for videos from the podcast and behind the scenes content – @novapodcastsofficial. CREDITSHost: Ant MiddletonEditor: Adrian WaltonExecutive Producers: Anna Henvest & Edwina StottManaging Producer: Elle BeattieSee omnystudio.com/listener for privacy information.

Help and Hope Happen Here
Maurice Ahern will talk about his son Micah who was diagnosed with Neuroblastoma when he was a year old in 2010, and battled with this form of Pediatric Cancer for 6 years before his passing on July 28th of 2016

Help and Hope Happen Here

Play Episode Listen Later Apr 22, 2024 63:04


Maurice Ahern and his family were living in China in 2010 when his 1 year old son Micah was diagnosed with Neuroblastoma. Maurice will talk about quickly moving his family to Orlando to have Micah's surgery and his 6 year ordeal fighting this disease which ended with his passing in July of 2016. Maurice will also talk about his love for the Food Industry and for Baking, which he has used for the past 7 years to help honor the memory of Micah and keep his legacy alive. 

Cannabis Health Radio Podcast
Episode 415: Her 22-year-old Son is Now Cancer Free After Neuroblastoma Battle

Cannabis Health Radio Podcast

Play Episode Listen Later Apr 17, 2024 38:51


Episode 415 Transcript: Welcome  to  Cannabis  Health  Radio,  a  podcast  where  we  share  stories  from  people  around  the  world  who  are  using  cannabis  as  medicine.  The  information  is  meant  to  raise  awareness  about  the  health  benefits  of  cannabis,which  should  not  be  taken  as  medical  advice.  Now,  here  are  your  hosts,  Ian  Jessop,  and Corrie Yelland  Welcome  to  the  cannabis  health  radio  podcast.I'm  Ian  Jessop.  And  I'm  Corrie  Yelland.  In  the  years  we've  been  doing  this  program,  we've  only  had  one  interview  related  to  neuroblastoma, which  is  a  cancer  that  develops  from  immature  nerve  cells  found  in  several  areas  of  the  body.  It  most  commonly  affects  children  aged  five  or  younger.  Our  guest  today  is  going  to  tell  us  the  story  of  her  son  diagnosed  with  neuroblastoma  as  an  adult.And  joining  us  from  London  in  the  UK  is  Catherine  who  doesn't  want  us  to  use  her  last  name  so  we  won't.  Catherine  thanks  for  doing  this  and  you  know  in  reading  the  write -up  you  sent  us  I  can't  imagine  what  your  son  has  gone  through  and  you  along  with  him.Now  it's  been  nearly  five  years  since  the  original  diagnosis.  What  is  the  journey  being  like  for  him  and  and  yourself?  Wow,that's  a  big  question.  Well,  when  he  was  first  diagnosed,  it  was  such  a  shock  because  the  tumor  started  in  his  smell  nerve  and  it  had  eaten  away  at  the  sinus  bones  behind  his  eyes, wrapped  around  his  eyes  and  it  was  as  big  as  a  small  orange.  It  was  enormous  and  we  just  couldn't  believe  it.  He  went  into  hospital  and  was  kept  in  because  of  his  saline  levels  and  a  nose  bleed  and  we  were  so  blessed  because  an  amazing  ENT  surgeon  was  doing  rounds  the  next  day  after  his  admittance  and  she  simply  said  to  us  is  the  nose  nosebleed  always  on  one  side  and  she  sent  him  straight  for  a  scan  and  she brought  us  into  a  side  room  and  showed  us  the  images  and  and  it  was  really  she  said  she  you  know  like  looking  at  the  literature  they  tried  to  find  people  with  this  situation  and  it  was  as  you  say  it's  normally  in  children  it  had  also  eaten  away  through  the  base  of  the  skull  and  the  tumor  had  pushed  up  into  the  brain.So  from  the  imaging  they  didn't  know  if  it  was  entangled  with  the  brain,  they  didn't  know  if  it  was  entangled  with  the  eyes.  So  we  had, she  had  a  month  to  stabilize  his  condition  and  he  spent  quite  a  while  in  intensive  care  because  of  the  salt  levels  in  his  body  and  then  was  was  prepared  for  surgery.Now  I  work  with  Reiki  and  I  have  a  lot  of  friends  who  are  complementary  health  practitioners  and  we  kind  of  got  on  the  case  so  everybody  started  sending  Reiki,  he  went  immediately  on  homeopathy, we  tried  to  get  cannabis  at  that  point  but  in  England  we  didn't  have  the  capacity  to  get  it  at  that  point  and  then  he  had  a  very  like  the  operation  line.About  seven  hours  and  they  went  in  through  his  nose,  cut  out  the  tumour  through  his  nose,  another  surgeon  they  cut  out  a  diamond  shaped  out  of  his  forehead, went  in  through  his  brain  so  he  had  an  ENT  surgeon  and  a  neurosurgeon  and  they  basically  spent  eight  hours  cutting  out  that  tumour.  Now  it  turned  out  it  hadn't  gone  into  the  brain  and  it  hadn't  hadn't  he  didn't  lose  his  eyes  and  it  didn't  damage  his  brain  so  that  was  the  prognosis  that  that  they  could  both  happen  and  I  really  think  that  was  a  miracle  at  that  stage  that  and  neither  of  those  things  happened  and  when he  went  just  for  listeners  how  old  was  your  son  at  that  stage  20  22,22.  Thank  you.  Yeah,  so  they  didn't  know  how  long  it  had  been  growing  for  because  normally  it's  quite  a  slow -growing  tumor  and  they  reckoned  it  could  have  been  you  know  since  probably  the  age  of  16  or  17.Now  I  do  remember  when  he  was  16  he  fell  down  a  stairs  head  first,  face  first  and  smashed  up  his  nose  and  and  all  of  that  kind,  like, you  know,  ended  up  quite  battered.  And,  you  know,  that  could  have  been  a  shock  that  started  it  at  that  stage.  That  was  the,  you  know,  who  knows,  it  could  have  been  latent  there  from  when  he  was  a  child.I  don't,  you  know,  nobody  knows  that  kind  of  thing.  But  yes,  it's  very  rare  and  very  rare  in  adults.  So  for  him,it  was  like  they  felt  they  had  got  all  the  tumor  out  but  they  wanted  him  to  do  what's  that  word  like  radiotherapy  just  in  case  you  know  even  though  there  was  no  visible  sign  of  any  cancer  left  and  that  in  itself  was  a  miracle  that  they'd  managed  to  remove  so  much  tumor  from  such  a  tricky  area.So  now  he  has  no  smell  nerve,  they  managed  to  make  a  seal  between  the  brain  and  the  sinuses.  He  did  suffer  a  period  of  brain  inflammation.  And  you  know, we  had  a  few  tricky  days,  very  tricky  days  in  intensive  care  where  he  was,  you  know,  hallucinating  and  brain  fever  and  all  of  that  kind  of  stuff.  And  funny, when  he  went  for  the  radiotherapy  a  few  months  later.  later  the  oncologist  said  oh  right  hello  so  I  didn't  I  wasn't  expecting  such  a  cosmetically  pleasing  result  when  he  read  Sean's  case  and  I  thought  it  was  amazing  that  I  mean  it  really  felt  like  he  was  blessed  and  that  he  was  blessed  that  he  didn't  lose  his  eye  I  mean  losing  your  smell  is  one  thing  you  know  he'll  never  get  that  back  and  But  losing  your  eye  isyou  know  quite  a  different  scenario.  So,  yeah  Catherine  what  was  his  response  to  getting  this  diagnosis  because  he's  a  young  man  when  he  gets  this  diagnosis  and  Last  thing  you're  thinking  about  in  your  early  20s  is  getting  sick.It's  about  you  want  to  get  out  there  and  have  some  fun  Yeah,  I  mean  he's  quite  incredible  Corey  He  he  was  he  really  is  he's  kind  of  very  inquisitive  by  nature, so  he  was  really  into  the  whole  process  of  what  the  surgery  was.  He  got  the  surgeon  to  take  photos  of  the  operation  and  then  they  were,  because  she  was  doing  it  as  a  lecture  operation  and  there  was  lots  of  people  watching  because  it  was  quite  a  complex  operation.So  I  remember  she  and  he  going  through  all  the  photos  of  the  operation  afterwards.  Now  I  couldn't  look  at  them.  I  mean,  I  just,  it  was  just  ghastly.  But  he  kind  of  approached  it, well,  this  is  just  something  I've  got  to  get  through  and  I've  got  to  get  on  with  it.  And,  you  know,  he  was  so  grateful  to  all  the  staff  at  the  hospital.  And,  you  know,we  met  some  amazing  people  and  we  met  some  incredibly  kind  people.  And  he  had  this  experience.  experience  that  he  never  imagined  he'd  have  and  it  was  just  well,I'm  just  going  to  get  on  with  it.  So  he  was  in  the  middle  of  his  second  year  of  his  degree  and  they  said  to  him  to  stop  studying  and  he  said  I  can't  if  I  haven't  got  something  to  hang  on  to  I  won't  get  through  this.So  he  carried  on  doing  his  studies.  I  remember  when  he  was  having  his  radio  therapy  he  was  getting  the  having  a  treatment  then  getting  the  train  down  to  sit  an  exam,then  coming  back  to  have  his  treatment  the  next  day,  and  that  he  was  having  them  timetable  his  treatments  around  his  exams.  And  now  we're  talking  at  two  opposite  ends  of  the  country,  you  know.So  it  was  really  extraordinary.  He  was  just  so  determined  that  this  wasn't  going  to  stop  him  and  impact  on  his  life.  you  know,  so  yeah.And  they  really  felt  that  the  chances  of  a  recurrence  of  a  neuroblastoma  are  apparently  quite  low  as  well,  so  and  fortunately  for  him,the  neuroblastoma  doesn't  react  with  chemo,  so  they  didn't  suggest  doing  chemo  with  him  at  that  stage  either,  so  come  kind  of...January,  so  he  was  diagnosed  in  August  2019,  come  January  2020.  He  was  ready  for  his  term  abroad,  he  went  off  to  Italy,and  he  wanted  to  work  at  the  Ferrari  faculty  in  Modena  University.  That  has  been  a  dream  of  his,  because  they  have  this  amazing  wind  tunnel,and  he  came  back  two  weeks  later.  later  for  a  medical  appointment  on  the  Friday  And  on  the  Sunday,  Italy  went  into  lockdown  with  coronavirus  So,  I  mean,I  felt  he  was  very  blessed  that  he  wasn't  locked  down  in  a  city  where  he  didn't  know  anyone  and  uni  was  Stranded  and  everything  and  I  felt  really  blessed.  He  was  here  The  fact  that  he  didn't  have  any  of  his  possessions  was  tricky.Um,  but  yeah,  so  he  he  kind  of  got  off  with  it,  to  be  honest.  And  he  hoped  it  was  done,  but  they  had  told  him  that  if  he  doesn't  have  a  recurrence  for  two  years,he's  got  a  much  stronger  chance  of  staying  free  of  cancer.  So  his  second  diagnosis  was  a  month  before  that  two  years  was  up.  So  that  was  really  good.So  he  got  his  results  of  a  biopsy.  on  his  left  lymph  node  the  day  that  he  got  his  results  of  a  first  in  his  masters  and  his  degree.So  it  was  a  really  bittersweet  day,  but  that  was  a  tumor  in  his  left  lymph  node,much  less  scary  surgery,  much  more  straightforward  operation.  and  again  the  medical  model  was  go  in,we'll  take  out  all  your  left  lymph  nodes,  fortunately  they  decided  not  to  do  the  right  ones  as  well,  at  the  same  time  I  was  really  saying  like  God  you  need  those  lymph  nodes,you  know  they're  just  so  important  for  keeping  your  body  clean  and  everything,  but  yeah  so  he  went  in  for  surgery  in  so  that  was  I  think  21,and  radiotherapy  again  to  the  whole  neck  area.  And  I  think  at  that  stage,that  was  much  more  difficult  for  him  because  it  was  like,  well  here  I  am,  I  want  to  get  started  with  my  life.  And  actually  he  couldn't  face.  he  went  to  Whistler  in  Canada,he  went  skiing  and  he  just  didn't  feel  confident  enough  to  go  out  into  the  employment  market,  he  was  just  like  I  just  want  to  have  some  adventures,I  just  want  to  kick  back,  it's  been  really  grim,  so  he  did  ski  season  in  Whistler  that  winter.  winter  and  then  stayed  on  that  summer  and  then  again  The  next  year  again,just  couldn't  think  about  the  future  and  he  said  I  don't  I  just  can't  think  about  a  future  So  I  don't  know  if  I  have  a  future,  you  know,  I  think  when  you  face  death  like  that  So,um,  yeah,  so  he  did  two  years  in  Whistler  and  he  was  just  coming  to  the  end  of  his  time  in  Whistler  This  was  2023  and  we  went  out  to  see  him  just  shortly  before  he  came  back  and  he  was  starting  to  look  for  jobs  and  starting  to  feel  that  maybe  he  could  do  that  and  he  started  to  lose  the  capacity  to  speak  and  his  words  were  slurring  and  he  couldn't  get  his  mouth  to  form  around  a  word  and  I  remember  we  weresitting,  we  were  on  Sunday  Sunshine  Coast  staying  with  some  friends  and  he  was  like,  "Well,  I've  looked  up  and  it's  either  like  some  form  of  neurological  disease  or  it's  a  brain  tumor."  And  we  were  like,"Okay,  Mr.  Google,  you  know,  his  first  person  used  to  say  to  him,  "Get  off  Google,"  you  know.  So,  yeah,  so  the  next  couple  of  days  later,he  was  really  bad  at  work  and  he  went  to  the  doctor  in  Whistler  and  because  of  ski  accidents  and  everything,  they  had  a  CT  scanner  there,  so  they  put  him  in  the  CT  scanner.  Massive,massive  brain  tumour.  A  large  plumber,  a  small  satsuma  was  the  definition  of  it  and  I've  seen  images  of  it  and  it  was  huge.So  that  was  in  the  end.  and  I'm  talking  about  a  guy  who's  still  cycling,  still  skiing,  still  hiking,  you  know,  doing  all  of  that  kind  of  stuff.  He'd  had  a  checkup  in  January,full  scans  in  January.  He's  on  annual  checkups  at  this  stage  and  there  was  nothing.  So  it  had  grown  from  nothing  to  that  size  in,well,  less  than  nine  months.  - Mm -hmm.  - And,  yeah.  So  it  was...  really  massive.  So  he  was  rushed  straight  to  hospital  in  Vancouver  and  surgeon,amazing  surgeon.  Like  really,  I  have  to  say,  I  thought  that  the  whole  team  there  were  incredible.  And  there  was  a  lot  of  risk  to  his  speech,his  movement,  the  whole  movement  of  his  upper  body,  his  cognitive  skills.  It  was  in  the,  the  left  sylvian  fissure  between  the  two  lobes,  between  the  frontal  lobe  and  the  side  lobe.Fortunately  it  was  growing  out  of  one  point  and  because  it  was  in  the  fissure  it  hadn't  actually  connected  to  either  side  of  those  two  lobes.  So  again,  you  know,as  soon  as  I  found  out  about  it,  I  got  an  email  sent.  sent  friends,  so  many  people  sending  him  Reiki.  He  was  in  Buddhist  prayer,  you  know,  temples.  He  was,you  know,  just  had  like  all  the  Irish  were,  you  know,  had  him  on  the  altar  and,  you  know,  it  just  so  many  blessings  coming  towards  him.  He  had  the  surgery.They  couldn't  take  out  all  of  the  tumor  because  part  of  it  was  under  a  major  blood  vessel  and  the  surgeon  judged  it  too  risky.  to  his  brain  health,  you  know,  to  dig  any  further.And  I  think  that  was  a  really  good  call.  I  remember  when  he  came  up  to  intensive  care  after  surgery,  he  just  put  Sean  through  this  kind  of  really  quick  fire, a  series  of  tests  of  reflexes  and  words  and  everything,  and  just  his  face,  the  relief  that  there  was  no...  brain  damage  from  the  operation.  So  there  was  a  one  centimeter  piece  of  tumor  left.And  because  we're  in  Vancouver,  I  had  a  friend  of  mine  rang  me  and  said  she  knew  someone  on  the  East  Coast  to  clear  themselves  of  cancer  with  cannabis.So  I  said,  "Can  you  tell  me?"  who  it  is?"  So  they  said,  "Well,  the  best  person  to  speak  to  is  Corrie,  but  I  don't  know  if  you'll  be  able  to  get  hold  of  her."  So  I  was  Googling  Corrie.I  tried  to  get  it  in  2019,  hadn't  been  able  to  get  it.  And  then  the  next  morning,  I  sent  Corrie  a  message,  and  the  next  morning  Corrie  had  an  appointment  to  do  an  interview,and  they  had  technical  difficulties.  difficulties  so  she  sent  me  a  message  and  said  if  you  can  jump  on  the  phone  now  I  can  talk  to  you  so  I  just  felt  it  was  all  again  more  blessings  you  know  more  miracles  coming  so  yeah  so  I  think  we  you  know  this  was  all  really  difficult  for  him  this  third  tumor  and  and  this  is  the  first  time  he  was  told  that  he  could  die.He'd  never  been  told  he  could  die  before  you  know  so  this  one  was  quite  major.  It's  funny  because  the  other  one  was  in  the  brain  as  you  know  pushed  up  into  the  brain  as  well  but  somehow  I  mean  he  felt  this  surgery  was  much  easier  but  then  I  think  he  wasn't  aware  of  all  the  times  he  he  was  in  delirium  and  in  and  out  and  stuff,you  know.  But  I  think  it  was  difficult  because  he  didn't  know  if  he  could  keep  going  on  with  just  being  ill,  just  being  ill,  feeling  like  I'm  talking  a  sportsman,you  know,  who  he  doesn't  drink,  he  doesn't  smoke,  he  eats  well,  you  know,  he's  a  really  sweet  guy.  Yeah,so  it  was  just  like,  "How  can  I  stop  this  happening?"  So  he  wanted  to  come  home  and  he  needed  to  wait  until  he  had  permission  to  fly  because  they  needed  to  make  sure  his  wound  site  had  healed  up  enough  and  stuff  like  that.So  we  got  him  on  some  oils  in  Canada.  thanks  just,  yeah  that  was  really  good  and  that  was  helping  him,but  then  he  had  to  come  back  here  and  by  the  time  he  came  back  in  November  and  they  scanned  him,the  tumour  had  massively  grown  again.  It  was,  I  mean  it  was  really...  very  aggressive,  growing  really,really  aggressively.  It  was  not  quite  half  the  size  it  had  been  when  it  was  first  operated  on.  It  was  filling  the  cavity,  the  brain  cavity  was  still  there.And  they  referred  them  back  for  further  surgery,  which  was  ruled  out  as  being  too  dangerous.  And  And  they  put  him,started  him  ready  for  radiotherapy.  So  at  this  stage,  we'd  been  in  touch  with  somebody  here.  We'd  got  cannabis  oil  and  a  load  of  detoxing  stuff.So  he  was  taking  that  three  times  a  day.  He  was  going  seeing  a  counselor,  which  was  the  first  time  he'd  seen  a  counselor.  So  here  and  I  just  it  and  it  was  like  you  have  to  deal  with  physical,mental,  emotional  and  spiritual.  You  have  to  go  at  this  with  all  levels  because  otherwise,  you  know,  if  you  really  want  to  know  whether  you  can  be  in  control  of  the  cancer  or  not,you  know,  you  need  to  do  this.  So  he's  been  amazing,  you  know,  he's  done  the  oil.  diligently,  he's  done  his  detoxing,he's  been  on  turkey  tail  mushrooms,  he's  been  having  reiki  every  day,  he's  been  on  homeopathy,  he's  been  having  acupuncture  three  times  a  week,he's  been  on  a  totally  vegan  alkaline  diet  since,  like  he  was  vegetarian  before  but  he  was  eating  a  lot  of  dairy  produce  and  you  know  he  was  eating  occasional  eggs  and  stuff  so  it's  just  everything  got  cut  out  you  know  every  scrap  of  sugar  got  cut  out  every  everything  and  the  oncologist  said  to  him  in  November  that  it  was  asking  a  lot  of  radiotherapy  to  clear  the  tumor  that  he  felt  that  a  good  result  would  be  ifit  stopped  growing  basically.  basically.  And  he  was  wonderful.  We've  lost  Milla  Karyankar.Yeah,  he  was  wonderful.  Like  the  consultant  was  really  treated  Sean  like  a  human  being,  you  know,  just  really  fantastic.  And  we  just  thought,well,  no,  we're,  you  know,  we're  going  to  do  everything  and  see,  see  what  happens.  And  so  the  whole  way  through  radiotherapy,  they  wouldn't  do  a  scan  until,like  they  weren't  going  to  do  another  scan  until  I  think  three  weeks  after  the  radiotherapy  finished.  So  it  started,  so  the  diagnosis  where  it  was  growing  and  growing  and  growing  was  November,2023,  last  November.  And  then  radiotherapy  started  at  the  beginning  of  December,  radiotherapy  all  through  December.  December  into  January,  and  then  they  scanned  him  the  middle  of  February.And  when  they  did  the  scan,  there  was  like  the  brain  had  all  closed  up  and  the  tumor,  it  looked  like  there  might  be  a  tiny  element  of  the  tumor  left,but  it  was  completely  like  you  know  from  where  it  was  before  it  was  like  just  all  gone.  And  he  didn't  know.  whether  it  was  tumour  still,  but  I've  seen  so  many  scans  of  cancer  at  this  stage.It  didn't  have  the  bright  white  look  that  cancer  has  on  a  scan.  It  was  kind  of  blurry  around  the  edges,  you  know,  didn't  have  defined  digest.So  they  spoke  with  us  about  chemo  at  that  stage  because  they  said  this  is  chemo  is  the  only  thing  else  that  we  have,  but  we  wanted  to  adopt  a  wait -and -see  policy,so  they  said  they'd  scan  again  in  another  month,  so  they  scanned  them  in  the  middle  of  March  and  there'd  been  no  change  in  that  little  blob  that  was  left,  so  they  think  it's  just  scar  tissue  from  the  original  wound  site,from  surgery  and  everything.  So,  it's  been  a  miracle.  It's  been  an  absolute  miracle.  And  I  have  to  say,  you  know,  the  oncologist  was  stunned,stunned.  And  the  biggest  impact,  Corey,  is  that  Sean  knows  now  how  to  stay  cancer -free  because  he  knows  it  wasn't  just  the  medics.He  knows  it  was  everything  else  that  he  did.  You  know?  know.  Right,  right.  When  he,  when  he  was  just  talking  a  little  about  the  dosing  of  his  oil.  So  how  much  was  he  doing  and  what  method?I  mean,  I  know  he  was  on  a  multi -stream  four  to  one  ratio  that  much.  I  know.  But  was  he  doing  it  all  rectally?  Yes,  absolutely,  all  rectally.And  one  of  the  things,  one  of  the  reasons  he  didn't,  this  is  really  important.  One  of  the  reasons  he  didn't  want  to  do.  do  the  oils  before  is  he  wasn't  prepared  to  take  anything  orally  because  he  can't  bear  that  feeling  of  loss  of  control  or  high  or  anything.So  when  you  advise  that  he  could  take  it  rectally,  that  was  such  a  game  changer  for  him.  You  know,  it  was  just  like,  yes,  I  can  do  this.  So  he  was  having  one  meal  three  times  a  day  rectally.(mumbles)  November.  So  that's  every  day  and  now  he's  gone  on  to  a  maintenance  dose  of  eight  drops  a  day  and  he's  going  to  experiment  between,he's  still  taking  rectally  rather  than  taking  orally  and  what  he  did  is  he  got  a  narrower  syringe  like  a  very  narrow  syringe.because  he  ended  up  at  one  stage.  The  biggest  impact,  and  we  think  it  was  the  steroids,  not  the  cannabis,  was  he  had  to  do  a  poo  frequently.So  he  would  do  his  treatment,  then  he  wanted  to  go  for  a  run  and  then  he  was  needing  to  go  for  a  poo.  and  this  was  really  impacting  on  him.But  it  turned  out  was  the  steroids  that  he  was  on  to  stop  the  swelling  in  the  brain  while  he  was  having  radiotherapy  had  impacted  on  the  muscles  in  his  anus  and  his  buttocks  so  much  that  that's  why  he  couldn't  stop.But  anyway,  he  ended  up  using  a  smaller  syringe.  syringe  which  he  found  easier  to  insert  and  then  you  know,he  could  still  do  the  one  mil  with  that.  So  yeah,  that  was  that  was  that's  still  his  preferred  method.  And  I  think  we'll  see  whether  he  goes  to  having  it  under  the  tongue  as  he  goes  along  because  he's  only  been  on  this  maintenance  dose  now  for  three  weeks.or  something  like  that,  you  know.  So,  yeah.  And  he's  very  happy  to  continue  taking  that  for  the  rest  of  his  life.  And  he  said  to  me,  you  know,  it  was  funny,  because  he  was  doing  so  many  things.And  some  people  were  saying  to  me,  well,  how  do  you  know  what's  working?  And  I  said,  I  don't  need  to  know  what's  working,  because  everything's  working  together,  you  know,  like  everything's  working  holistically  together.So,  he  said,  but  I  do  know  know  that  the  cannabis  oil  is  the  most  important  thing  that  I'm  doing  and  if  I  miss  anything  that  is  the  thing  I  don't  miss  you  know  so  I  thought  that  was  really  interesting  because  I  was  so  pleased  this  time  to  be  able  to  get  it  because  I  thought  now  he  just  has  a  way  of  keeping  the  cancer  at  bay  you  know  so  he's  going  to  stay  on  his  vegan  alkaline  diet  that's  an  brainer  for  him,no  alcohol,  no  brainer,  no  sugar.  And  he's  finding  ways  to  live,  and  as  you  can  imagine  living  in  London,  where  eating  out  is  such  a  big  thing  and  night -slubbing  are  such  a  big  thing,you  know.  But  he's  wanting  to  find  people  to  have  outdoor  adventures  with.  And,  you  know,  he's  been  hiking  on  the  South  Downs  and  he's  been,  you  know,  doing  some  wild  camping  and  he's  training  for  a  marathon.You  can  believe  it.  So  yeah,  I  mean,  he's  pretty  determined.  And  when  he  got  the  diagnosis  that  he  was  clear,  he  walked  out  and  he  said,now  I  know  I  will  live  to  see  another  summer.  So  I  was  crying.  I  mean,  you  know,  26  year  old,  you  know,nearly  five  years  with  cancer  and  yeah,  yeah.  An  extremely  aggressive,  you  know,  as  it  turns  out  to  me,  it's  extremely  aggressive  in  this  case.And  what  he's  accomplished  is  nothing  short  of  a  miracle.  I  mean,  it's  absolutely  amazing.  Yeah,  in  such  a  short  time.  Yeah,to  turn  around  from  having  a  tumor  that's  re -growing  so  aggressively  in  November  and  then  by  February,  it's  gone.  I'd  say  that's  pretty  good.Catherine,  did  this  change  your  attitude  about  cannabis?  Oh,  well,  yeah.  Listen,  I  work  as  a  healer.healer.  So,  you  know,  and  I  met  Charmin  and,  you  know,  I  work  with  Reiki  and  it's  incredible  plant  medicine.  I  just,  what's  so  frustrating  to  me  is,you  know,  the  value  of  what  he  had  with  the  multistrains  and  the  whole  product  and  all  of  that.  And  they  think,  oh,  well,  this  compound  and  this  compound  and  then  they  strip  it  out  and  they  take  it,all  these  different,  elements  and  separate  them.  To  me  you  don't  understand,  like  they  don't  understand  what  they're  doing,  they  don't  understand  how  topically  the  whole  plant  works  together  and  all  the  different  strains  work  together.So  it's  kind  of  nature  creates  this  incredible  product  and  then  you  mess  around  with  it  and  you  take  out  half  compounds,  you  know  it  doesn't  make  any  sense.  So  that's  why  I'm  on  orchestra.this  the  UK  company  GW  pharmaceuticals  who  does  does  that  is  it  GW  pharmaceuticals  yeah  I  think  so  yeah  but  I  think  it's  the  same  in  Canada  now  I  mean  my  friend  who  I  was  staying  with  in  Vancouver  her  son  is  growing  on  the  roof  and  all  the  rest  of  it  but  when  she  talked  about  the  medicinal  stuff  she  said  since  the  new  legislation  it's  just  got  so  much  worse  because  now  you  can't  get  the  whole  product  you  knowyeah  so  it's  like  well  we  legalize  this  proper  not  this  part  and  that's  just  because  you  don't  understand  you  know  and  I  think  just  because  you  don't  understand  doesn't  mean  you  you  can  mess  with  it  you  know  yeah  yeah  you  know  you  know  Catherine  I  have  a  I  have  a  saying  that  God  what  the  Creator  Creator,whatever  your  belief  system  did  not  put  that  plant  on  the  earth  with  all  these  properties  in  it  for  it  to  all  be  separated,  period.  Yeah,  yeah.  And  I  have  to  say  one  of  the  things  the  homeopathy  has  been  doing  is  working  to  counteract  all  the  like  the  radiotherapy  and  the  steroids  and  doing  a  cleaning  from  that.And  it's  like,  I  feel  we've  got  one  thing  that's  helping  clean  up.  up  all  the  drugs.  And,  you  know,  the  medical  companies  will  say,  well,  there's  nothing  in  homeopathy.  There's,  you  know,  but  it's  energy  medicine.Yeah.  And  with  cannabis,  I  think  you've  got  the  energy  medicine  element  as  well  as  the  physical.  You  know,  for  me,  it's  working  on  all  the  levels,  which  is  one  of  the  real  gifts  that  it  has,because  not  every  plant  has  that.  No,  absolutely.  Catherine,  you  remember  when  we  started  this  interview,  I  asked  you  how  these  five  years  have  been  for  you?  And  you  said  it  was  a  good  question,but  you  kind  of,  you  didn't  answer  it.  Okay.  I'm  used  to  interviewing  politicians.  So  I  saw  you  slide  by  that  one.How  is  it  being  for  you  and  your  son?  Let's  start  with  you  first.  I  Have  to  say  it's  been  really  intense  one  of  the  things  that's  been  difficult  is  because  I  work  as  a  healer  I  Immediately  had  a  role  to  play  and  for  my  husband.He  felt  he  didn't  have  a  role  to  play  and  that  was  difficult  You  know  that  was  difficult  for  him  and  it  was  difficult  for  our  marriage.  I  think  it  was  difficult  balancing.I  have  three  sons,  so  it  was  difficult  remembering,  okay,  I  need  to,  I  need  to  be  here  for  all  of  them.  Um,  and  it  was  difficult  to  let  him  go  when  I  needed  to  let  him  go  and  hope  that  he  was  well  and,you  know,  let  him  get  on  with  his  life.  It's  also  been  such  a  profound  gift  to  me.  get  to  know  somebody  so  well  and  to  have  such  a  deep  relationship  with  my  eldest  son,you  know,  that's  been  an  extraordinary  gift.  And  I've  seen  things  I  would  never  have  seen  in  life.  I  mean,  I've  seen  incredible  things  in  hospitals  that  I've  become  so  intimate  with  hospitals  in  a  way  for  someone  who's  never  been  ill.you  know,  just  witnessing  things  that  go  on  when  people  are  really  unwell  has  been  a  gift  and  it's  been,  I  think  one  of  the  biggest  gifts  Sean  has  given  many  people  is  the  capacity  to  give  to  him  because  he's  just  the  first  night  in  intensive  care  after  the  diagnosis.He  said,  "Mom,  you  must  contact  everybody  you  know  and  ask."  them  for  help  and  ask  them  for  Reiki."  And  I  promised  him  that  and  that  was  so  challenging  for  me  because  normally  I'm  quite  a  private  person  but  I  contacted  everybody  and  I  mean  in  excess  of  100  people  were  sending  him  healing  and  then  people  were  just  coming  up  going,"I  heard  about  your  son  and  can  I  help  and  I  can  do  this.  Would  you  like  me  to  do  that  for  him?  I  can  do  this.  Would  you  like  me  to  do  that?"  and  he  was  so  open  to  being  helped  this  whole  journey.The  openness  and  the  exploration  was  just  so  rich.  I  can't  explain  it.And  he  will  say  he  doesn't  view  it  as  a  bad  thing  at  all.  It's  just  been  a  very  enriching  journey.  Yeah.  And  when  he  looked  like  he  might  die  in  November,he  said,  I  have  no  regrets.  He  said,  I've  done  everything  I  wanted  to  do.  And  if  I  go  now,  I  have  no  regrets.  You  know,  he'd  had  his  two  years  in  Whistler,he'd  jumped  off  mountains,  he'd  been  up  in  a  helicopter  and  jumped  off  a  mountain,  he'd  gone  hiking  overnight  out  in  nowhere.  You  know,  he'd  just  just  had  all  of  these  adventures  and  he  never  let  his  health  stop  him  having  adventures,you  know,  because  he  said,  "If  I  can't  live,  there's  no  point  in  being  here,"  you  know.  So  yeah,  and  he's  really  shown  all  of  us  how  to  live.Well,  he  certainly  has.  I  mean,  what  you  said,  "If  I  can't  live,  there's  no  point  in  being."  being  here.  I  mean,  that  is  a  great  comment  about  most  of  the  world  who  just  exist  from  day  to  day.And  without  any  appreciation  for  life  itself.  And  when  you  get  into  a  life -threatening  situation  like  that,  you  do  have  an  appreciation  for  life,  a  renewed  appreciation.  And  I  think  that's  what  he  has.And  you  yourself  I  imagine,  have  been  given  renewed  appreciation  for  the  life,  his  life,  and  you  look  at  your  life  differently,do  you?  - Oh,  absolutely,  absolutely,  yeah.  Yeah,  I  mean,  both  my  husband  and  I  are  working  part -time  where  planting  trees  and  making  time  in  nature  and  all  of  that  kind  of  stuff.And  we've  just  trimmed  our  financial  outgo.  to  match  our  incomeings  and  just  gone,  no,  we  can't  wait  for  some  future  Nirvana  point,you  know,  we  need  to  live  now.  Yeah.  Yeah.  And  that's  interesting,  because  so  many  people  spend  so  much  of  their  life  being  afraid  to  die,that  they  don't  live,  you  know.  And  I  think  we  have  completely  flipped  that  and  actually,  you  you  know,  if  I  was  to  go  tomorrow,  I  have  no  regrets  You  know,  there's  lots  of  things  I  still  want  to  do  But  I  feel  that,you  know,  we're  having  adventures  in  the  moment  Just  not  putting  things  off  anymore,  you  know,  because  that's  a  very  big  thing.  I'll  do  that  next  year  I'll  do  that  next  year,  you  know,and  next  year  never  comes.  So  damn  it.  Catherine  do  it  now.  Yeah  Yeah  Yeah,  yeah,  yeah.  - Catherine,  it's  a  wonderful  story  you've  told  us  about  your  son  and  what  he's  gone  through  and  what  the  two  of  you,what  you've  gone  through  as  a  family.  And  I  think  other  people  listening  to  what  you  said  will  be  inspired.  And  I  know  that  somewhere  in  the  world  you  will  change  a  life  or  a  number  of  lives  from  what  you've  told  us.We  greatly  appreciate  it.  - Thank  you  so  much.  Thank  you.  And  no,  there's  always  hope.  If  you  have  a  will  to  live,  the  universe  responds  to  that  and  will  tell  you  how  you  can  do  it.That's  the  biggest  lesson  I've  learned  in  all  of  this.  Before  we  go,  I  want  to  let  our  listeners  know  that  you  can  help  us  spread  the  word  about  the  amazing, often  life -saving  health  benefits  of  cannabis.  cannabis,  just  by  sharing  the  podcast,  writing  a review,  or  rating  us.  We  very  much  appreciate  the  help  of  everyone  who's  done  that  already.And  we  really  like  the  five -star  ratings.  We'd  also  like  to  thank  those  of  you  who  support  the  show  by  making  a  one -time  donation  or  a  monthly  donation  on  our  Patreon  page, which  you  can  do  for  as  little  as  $5  a  month.  It'll  help  to  keep  us  running.  You'll  find  out  how  to  do  that  on  our  website,  cannabishealthradio .com.Thank  you  for  your  support.  It  means  so  much  to  us.  And  we'll  be  back  again  next  week  with  another  episode  of  Cannabis  Health  Radio.  - Thanks  for  listening.For  more  information  and  to  search  previous  podcasts,  visit  our  website,  cannabishealthradio .com.   Visit our website: CannabisHealthRadio.comFollow us on Facebook.Find us on Rumble.

The Activity Continues
Ghosts Gone Wild: The Everglades

The Activity Continues

Play Episode Listen Later Apr 4, 2024 82:40


This week we are discussing The Dead Files “Deadly Force” (Season 11 Episode 13) which aired October 2, 2024.  Join us while we discuss college drinking experiences, the meaning of handing someone a hankie, and if regular old vampires should still be considered energy vampires. Also listen to us trying to do math to figure out the ages of people in a story in history.Content Warning:In this episode we mention throwing up from heavy drinking, deep depression, murder, suicide, graphic nightmares, inappropriate ghostly behavior, and childhood cancer, as well as other cancers. So trigger warning for those who need it. Also, we swear.The Activity Continues is a paranormal podcast where soul friends, Amy, Megan, and AP chat about pets, true crime, ghost stories, haunts, dreams, and other paranormal stuff including the TV show, The Dead Files. We also sometimes interview interesting people, whether it be a paranormal professional, a Dead Files client, or a listener with spooky stories.So, grab your beverage of choice, and join us where… The Activity Continues.This episode was recorded on March 4, 2024, and released on April 4, 2024.Episode links:Dead Files Facebook discussion group https://www.facebook.com/groups/349685608487221Richard J.Bolleshttps://en.wikipedia.org/wiki/Richard_%22Dicky%22_J._Bolleshttps://everglades.fiu.edu/DCC/everglades/reclaim/bios/bolles.htmAfter his death: https://www.whitewayrealty.com/old-class-photos/the-bolles-school/the-history-of-the-bolles-schoolNapoleon of Finance:(mentions the Dead Files): https://e-governmentresearch.blogspot.com/2019/11/napoleon-of-finance-swindled-local.htmlFlorida Fruit Lands Co. https://jacquithurlowlippisch.com/tag/bolles-founded-the-first-of-his-florida-enterprises/Pulmonary Edema and Neuroblastoma:https://www.cancer.net/cancer-types/neuroblastoma-childhoodhttps://www.mayoclinic.org/diseases-conditions/pulmonary-edema/symptoms-causes/syc-20377009https://www.google.com/amp/s/amp.cancer.org/cancer/types/neuroblastoma/detection-diagnosis-staging/survival-rates.htmlhttps://www.mayoclinic.org/diseases-conditions/neuroblastoma/symptoms-causes/syc-20351017Spirit Mechanixhttps://www.instagram.com/spirit.mechanixhttps://www.patreon.com/spirit_mechanix/posts?showTiersModal=truehttps://spiritmechanix.com/Disclaimer:This podcast is in no way affiliated with Warner Brothers, HBOMax, the Travel Channel, Painless TV, or the TV show The Dead Files or any of its cast or crew. We're just fans that love the show and want to build a community of like-minded people who would enjoy hanging out and discussing the episodes and similar content.Credits:Hosted by: Amy Lotsberg, Megan Simmons, and Amy PiersakProduction, Artwork, and Editing: Amy Lotsberg at Collected Sounds Media, LLC.Theme song. “Ghost Story” and segment music by Cannelle https://melissaoliveri.com Socials and other goodies:Our website, https://www.theactivitycontinues.com/ Facebook Page: https://www.facebook.com/theactivitycontinues Instagram: https://www.instagram.com/theactivitycontinues/ Twitter: https://twitter.com/TheActivityCont   Blog for extras: https://www.theactivitycontinues.com/blog/Patreon: https://www.patreon.com/theactivitycontinuesYouTube: https://bit.ly/TAC_videos Newsletter sign-up: http://eepurl.com/hWnBLL SEND US YOUR PARANORMAL STORIES!Email: theactivitycontinues@gmail.com and maybe it will be read on the show!Or visit our website, https://www.theactivitycontinues.com/ and click on the microphone icon to leave a message and maybe it will be played on the show!BE OUR GUEST!Are you a The Dead Files client, or a paranormal professional, and would be interested in being interviewed on our show? Let us know by filling out our guest form:https://www.theactivitycontinues.com/guests/intake/Affiliates/SponsorsPlease see our Store page for all the links for all our affiliates. https://www.theactivitycontinues.com/store/  Thank you for listening, take care of yourselves. We'll see you next week!A Paranormal PodcastSupport this podcast at — https://redcircle.com/collected-sounds2/donations

Momsday Bunker
Meet Mardon; A story about Neuroblastoma, Dino Jake, remembrance, and conspiracies!

Momsday Bunker

Play Episode Listen Later Apr 3, 2024 40:58


Coffee so strong it'll walk into your cup! You'll never meet a stronger mom. Mardon fought hard for her Dino Jake as he battled Neuroblastoma; the dirtiest of childhood cancers. In this episode we talk about childhood cancer conspiracies, what it's like in those first few moments of diagnosis, and the end of the journey. Take care of yourself as you listen to Mardon's story as she navigates the loss of a child under unimaginable circumstances while finding beauty in the ashes. Grab yourself a cup of coffee and join us today in the Momsday Bunker with Keri Henson!

Help and Hope Happen Here
Vickie Stevens and Don McCarthy will talk about their son Rio and his current battle with Stage 4 Neuroblastoma which he was diagnosed with in August of 2023

Help and Hope Happen Here

Play Episode Listen Later Mar 28, 2024 53:55


In April of 2023 Vickie Stevens and Don McCarthy's little son Rio was experiencing a loss of appetite, limping instead of walking, and losing energy. After a stay at a local hospital did not solve the question of what was wrong with Rio, he was transferred to a large hospital in London and was finally diagnosed with Stage 4 Neuroblastoma. Rio is now into his 8th month of treatment  and the hope is that he will at some point be able to travel to Memorial Sloan Kettering in New York to take a drug that has proven to be highly successful in treating Rio's form of Neuroblastoma . Vickie and Don will also talk about the organization Solving Kids Cancer which has proven to be very helpful for their family and many others in England.  www.solvingkidscancer.org.uk/children/rio+1

The Orthobullets Podcast
Pathology⎪Neuroblastoma

The Orthobullets Podcast

Play Episode Listen Later Mar 24, 2024 5:54


In this episode, we review the high-yield topic of⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Neuroblastoma⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the Pathology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Orthobullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on Social Media: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Twitter⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube --- Send in a voice message: https://podcasters.spotify.com/pod/show/orthobullets/message

CURE Talks Cancer
S6 Ep18: Guidelines for Childhood Neuroblastoma, FDA Decisions and More

CURE Talks Cancer

Play Episode Listen Later Feb 12, 2024 7:13


Last week, we saw a few moving parts in the regulatory space, from new NCCN guidelines for pediatric neuroblastoma treatment to FDA Fast Tracks and Priority Reviews. Also last week, we covered research showing that a lower dose of an anti-emetic drug could have similar efficacy — and fewer side effects — than the standard, higher dose.  NCCN Guidelines Give Framework for Childhood Neuroblastoma Treatment The National Comprehensive Cancer Network recently published guidelines for the treatment of pediatric patients with neuroblastoma. This resource is geared toward mitigating unnecessary side effects and over treatment in patients with low-risk disease, while also developing the best treatment plans for high-risk patients.  CURE® spoke with Dr. Rochelle Bagatell, professor of Pediatrics and Solid Tumor Section Chief at Children's Hospital of Philadelphia, and Chair of the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) Panel for Neuroblastoma, who emphasized that while these guidelines can influence treatment strategies, conversations between patient families and clinicians and even insurance coverage, each patient's care should be as personalized as possible.  “There may be specific cases where the nuances of a particular patient's case means that you have to adjust your thinking from what's written on those nice, clear lines,” Bagatell said. “But the general guidance about how to think about the risk of recurrence, what general type of therapy would be appropriate, how much chemotherapy when to do surgery. Those are the kinds of things that patients and families can look at and bring to their doctor and discuss.” FDA Fast Tracks ARV-471 for Metastatic Breast Cancer Last week the Food and Drug Administration (FDA) granted a Fast Track designation to ARV-471, a novel drug being studied for the treatment of patients with ER-positive, HER2-negative locally advanced or metastatic breast cancer. Specifically, this indication of ARV-471 is for patients who previously underwent endocrine therapy.  Fast Track designations are given to drugs that show promise in treating serious conditions and fill an unmet need. The goal is to speed up the review and potential approval of these therapies.  ARV-471 is being studied in the phase 3 VERITAC-2 clinical trial, which is comparing ARV-471 to Faslodex in this patient population. Preclinical studies showed that the drug induced tumor shrinkage and degradation.  FDA Grants Priority Review for Alecensa in Some ALK-Positive NSCLC Also in FDA news from last week, the agency granted a priority review to Alecensa as a postsurgical treatment for patients with early-stage ALK-positive non-small cell lung cancer.  The priority review is based off findings from the phase 3 ALINA trial, which showed that the drug led to a 76% reduction in the risk of disease recurrence or death compared with chemotherapy treatment. Findings from this study also showed that at two years, 93.8% of patients taking Alecensa experienced disease-free survival (which is the time after treatment when patients do not have symptoms of complications from their cancer), compared with 63% in the chemotherapy group. At three years, disease-free survival rates were 88.3% and 53.3%, respectively.  With the priority review, the FDA said that they plan on making an approval decision on Alecensa on or by May 22, 2023, though those dates can always change.  Lower Dose of Nausea, Vomiting Drug Controls Chemo Symptoms Finally, research showed that a lower dose of a nausea and vomiting drug could be just as effective as the higher, standard dose when it comes to controlling chemotherapy-induced nausea and vomiting.  A study published in The Lancet Oncology found that a 2.5-milligram dose of olanzapine is not inferior (meaning it is no less effective) than a 10-milligram dose. Specifically, the researchers looked at the use of rescue medications, vomiting episodes and mild nausea over the course of 120 hours.  Notably, this lower dose can also lead to a decrease in side effects related to the drug, such as feeling of lethargy and drowsiness.  For more news on cancer updates, research and education, don't forget to subscribe to CURE®'s newsletters here.

Help and Hope Happen Here
Dr. Daniel Morgenstern will talk about his expert knowledge on Neuroblastoma and his work in Drug Development for Pediatric Cancer patients on today's podcast.

Help and Hope Happen Here

Play Episode Listen Later Jan 25, 2024 51:55


Dr. Daniel Morgenstern grew up and was educated in England and went to the University of Cambridge as part of his medical education. In 2016 he moved to Toronto where he became a Staff Oncologist at Sick Kids Hospital in Toronto with his expertise being in the Pediatric Cancer Neuroblastoma. While working diligently on this cancer, Dr. Morgenstern is also involved in drug development in trying to find new novel therapies that will help Pediatric Cancer patients who need new medicines which are less toxic as quickly as possible. 

Help and Hope Happen Here
Lysi Kinyon and Sara Ross McHenry are both long term survivors of Neuroblastoma and will talk about their experiences for more than 20 years of trying to deal with the difficult long term side effects from this form of Pediatric Cancer.

Help and Hope Happen Here

Play Episode Listen Later Jan 4, 2024 47:08


Lysi Kinyon was diagnosed with Neuroblastoma before she was even born and Sarah Ross McHenry was diagnosed with this form of Pediatric Cancer when she was 8 years old. Lysi and Sarah will talk about the many long term side effects that both of them have had to experience for more than 20 years and how, even with all of their difficulties, they have been able to live their best lives possible, which includes giving back to others. 

CURE Talks Cancer
S6 Ep8: FDA Approves 3 Treatments, Cancer Vaccine Shows Promise

CURE Talks Cancer

Play Episode Listen Later Dec 20, 2023 8:16


The FDA is certainly staying busy as 2023 comes to a close, approving three treatments for patients with cancer last week alone. Additionally, exciting study findings were released regarding a cancer vaccine for the treatment of melanoma. FDA Approves Iwilfin for High-Risk Neuroblastoma in Adults and Children The FDA approved has Iwilfin (eflornithine) for the treatment of adult and pediatric patients with high-risk neuroblastoma who have shown at least a partial response to a previous multiagent modality therapy, which includes anti-GD2 immunotherapy. Notably, the FDA reported that this drug is the first approval of a therapy used to reduce the risk of relapse in children with high-risk neuroblastoma. Neuroblastoma, as the National Cancer Institute explained on its website, is a cancer of immature nerve cells that most typically occurs in children, and often begins in the adrenal glands. The FDA said the major efficacy outcome measure behind the approval was event-free survival (EFS; time after treatment when cancer does not come back or worsen; disease progression), while other notable findings included overall survival (OS; length of time from diagnosis or start of treatment when a patient is still alive). FDA Approves Welireg for Advanced Kidney Cancer Subtype The FDA approved Welireg ((beluztifan) for patients with advanced renal cell carcinoma (RCC) who have been previously treated with a programmed death receptor-1 (PD-1) or programmed death-ligand 1 (PD-L1) inhibitor, and a vascular endothelial growth factor tyrosine kinase inhibitor (VEGF-TKI). The approval was based on findings from the LITESPARK-005 trial. Trial findings presented earlier this year at the European Society of Medical Oncology Annual Congress (ESMO) showed that at a median follow-up of 18.4 months, patients treated with Welireg experienced objective response rates (patients whose disease responded partially or completely to treatment) of 21.9%, compared with 3.5% among patients treated with Afinitor (everolimus), and 12-month progression-free survival (PFS; the time a patient lives without their disease spreading or worsening) rates were 33.7% on Welireg versus 17.6% with Afinitor, and 18-month PFS rates were 22.5% and 9%, respectively. FDA Approves Padcev-Keytruda Combo in Advanced Bladder Cancer The FDA has additionally approved Padcev (enfortumab vedotin-ejfv) plus Ketruda (pembrolizumab) for patients with locally advanced or metastatic bladder cancer. Alongside this, the FDA previously granted an accelerated approval for this patient population who are unable to be treated with cisplatin-containing chemotherapy. In the recent EV-302/KN-A39 trial, both OS and PFS showed significant improvements among the Padcev plus Keytruda group of patients, as the median overall survival for these patients was 31.5 months, while a cohort treated with chemotherapy experienced a median OS of 16.1 months. Regarding progression-free survival, the median was 12.5 months for the Padcev-Keytruda combination group and 6.3 months in the chemotherapy group. Cancer Vaccine Plus Keytruda Reduces Risk of Recurrence or Death in Melanoma Patients with advanced-stage melanoma continue to experience reduced risk of recurrence or death following treatment with a combination of mRNA vaccine mRNA-4157 (V940), an investigational individualized neoantigen therapy (INT), and Keytruda, according to recent study findings. The mRNA-4157 (V940) and Keytruda combination reduced the risk of recurrence or death by 49% and the risk of distant metastasis or death by 52% when compared with treatment with Keytruda alone in patients with stage 3 or 4 melanoma with high risk of recurrence following complete resection, as determined by the phase 2b KEYNOTE-942/mRNA-4157-P201 study, according to a news release from drug manufacturers Moderna and Merck. The latest findings, from a median planned follow-up of approximately three years, build on previously announced primarily analysis data from a median planned follow-up of approximately two years which showed that the combination reduced the risk of recurrence or death by 44% and the risk of distance metastasis or death by 65% when compared with Keytruda alone. Based on the trial's findings, the Food and Drug Administration (FDA) granted Breakthrough Therapy Designation to the combination for the post-surgical treatment of patients with high-risk melanoma earlier this year. Moderna and Merck have also announced the phase 3 INTerpath-001 (V940-001) clinical trial to evaluate the combination as an adjuvant treatment for patients with resected, high-risk stage 3B to 4 melanoma, which is currently enrolling participants, as well as a phase 3 trial for the treatment of patients with non-small cell lung cancer treated with the combination regimen. For more news on cancer updates, research and education, don't forget to subscribe to CURE®'s newsletters here.

New FDA Approvals
Belzutifan for RCC; AFib Ablation; Roflumilast for Seborrheic Dermatitis; Eflornithine for Neuroblastoma; Isavuconazonium Sulfate For Pediatric Patients; Travoprost Intracameral Implant for Glaucoma; AR Glasses; PD Ablation System; Psychedelics for PTSD

New FDA Approvals

Play Episode Listen Later Dec 18, 2023 15:11


Check out our free downloads at nascentmc.com: Implementing AMA Style – 8 Things to Get Right in Your Next Project Needs Assessments – 7 Essentials for Getting Funded Working With Your Medical Writer – 8 Ways to Get the Most out of Them See the full write ups for today's episode at nascentmc.com/podcastHere are the highlights: Belzutifan (Welireg) for RCC: - FDA approved belzutifan (Welireg) for advanced renal cell carcinoma (RCC) following prior treatments with PD-1/PD-L1 inhibitors and VEGF-TKI. Belzutifan is an HIF-2α inhibitor, the first novel therapeutic class for advanced RCC since 2015. Approval based on phase 3 LITESPARK-005 study data, granted to Merck Inc. Pulse Field Ablation (PFA) system for AFib: - FDA approved PulseSelect PFA system for atrial fibrillation (Afib) treatment. PFA uses electrical pulses to ablate cardiac tissue without thermal energy, reducing adverse events. Medtronic Inc. received approval. Roflumilast 0.3% (Zoryve) for Seborrheic Dermatitis: - FDA approved roflumilast foam 0.3% (Zoryve) for seborrheic dermatitis in individuals aged 9 and older. This is the first drug with a new mechanism of action for seborrheic dermatitis in over two decades. Approval supported by positive results from the STRATUM phase 3 trial, granted to Arcutis Biotherapeutics, Inc. Eflornithine (Iwilfin) for Neuroblastoma: - FDA approved eflornithine (Iwilfin) to reduce the risk of relapse in high-risk neuroblastoma patients. Eflornithine inhibits ornithine decarboxylase, reducing cell growth. Approval based on multi-site study results and granted to US WorldMeds, LLC. Isavuconazonium Sulfate For Pediatric Patients: - FDA approved isavuconazonium sulfate (Cresemba) for invasive aspergillosis and mucormycosis in pediatric patients. Provides an alternative to eye drops for glaucoma treatment, offering continuous delivery of travoprost. Approval based on Phase 3 trials and plans for label change, granted to Glaukos. Augmented Reality Smart Glasses Technology: - FDA approved NuLoupes augmented reality smart glasses with 3D stereoscopic imaging for dentistry and medicine. Offers live 3D stereoscopic imaging and plans to ship developer kits in 2024. Approval granted to NuEyes. OneRF Ablation System for Parkinson's: - FDA cleared the OneRF Ablation System for neurosurgical procedures in Parkinson's disease and other neurological conditions. Designed to capture electrical activity and selectively destroy brain tissue. Launch planned by NeuroOne in the first half of 2024. Pimicotinib For Tenosynovial Giant Cell Tumor: - FDA granted fast track approval to pimicotinib for the treatment of tenosynovial giant cell tumors. Demonstrated an overall response rate of 87.5% in a Phase 1b trial. Manufactured by Abbisko and commercialized in partnership with Merck. NDA for MDMA-Assisted Therapy for PTSD: - NDA submitted for MDMA in combination with psychotherapy for PTSD, aiming to be the first psychedelic-assisted therapy approved for PTSD. Submission by MAPS Public Benefit Corporation based on positive Phase 3 clinical trial results. Requested Priority Review of the NDA.

Simon Conway
Pinky Swear All-Star Story: Brixton

Simon Conway

Play Episode Listen Later Dec 15, 2023 5:42


Brixton was diagnosed with Neuroblastoma when with he was 7 months old but thankfully, he's is cancer-free and is enjoying wrestling, soccer, and swimming and being an active six year old. His mom, Taryn was in the Hy-Vee studio to give us all the good updates on Brixton.

Discover Lafayette
Jason Stoner and Stephen Rogers – Bringing Sunday Dinner To a Whole New Level

Discover Lafayette

Play Episode Listen Later Nov 17, 2023 46:00


Our guests today are Jason Stoner and Stephen Rogers, who are well-known locally for their exceptional foodie and presentation skills! Jason and Stephen devise the menu, theme, and special tablescape (a blend of table and landscaping) in the weeks preceding each event; Jason captures the process with meticulous photography to heighten the sense of appreciation for each meal prepared with love. Jason is the chef and creator of the menu; Stephen is the master of planning the ambiance and theme of the evening and takes great care to select the perfect silverware, napkins, plates, drinkware, etc. The couple have hosted a Sunday Dinner at 6 p.m. once each month for the past few years that began in 2017 when they hosted a special birthday supper for their family. It was such a hit their children insisted on making the dinner a weekly celebration. Over time, the event morphed into a monthly affair that is closely followed by foodies. The waiting list of people hoping to attend speaks for itself. Thousands of people watch on social media to see what unique creation and decor these two will come up with! Only a few guests are selected each month so nabbing an invitation is a fete, to say the least! Jason and Stephen have never repeated a menu or theme. As an example, November 2023's Sunday Dinner centered on a TexMex menu, featuring beef enchiladas on homemade tortillas and sour cream sauce, with assorted sides, all freshly prepared. The evening's theme was Dia de los Muerxos, which originated in Mexico and is a days-long celebration in honor of family members who have passed away. The playlist was Tejano Classics on Spotify. The event was hosted in honor of Emmalyn Grace Quebedeaux, a young child who was recently diagnosed with Stage 4 Neuroblastoma cancer. The lucky Sunday Dinner guests won the privilege of attending via a raffle in support of Moving Mountains for Emmy, a go fund me fundraiser in support of the little one's medical treatments. For more information on how to contribute to Emmalyn Grace Quebedeaux's medical expenses, please visit https://www.gofundme.com/f/moving-mountains-for-emmy Stephen spoke lovingly of the inspiration he received from his grandmother who was his 'spirit animal,' a flamboyant and creative woman who loved design. Her inspiration was still present whenJason and Stephen's house sat under two feet of water after the 2016 flood; they realized that in rebuilding and reconstructing their home life, they wanted to use all of the beautiful things they had been keeping in the cabinets. They now utilize beautiful family china and glassware that they inherited from loved ones such as Stephen's grandmother. And as Jason says, "We eat with our eyes first, so we always try to plate the meal over the top." Jason always tries to source food items locally whenever possible, and he mentioned his love of City Girl's Farm's edible flowers, microgreens, and herbs, as well as Coastal Plains Meat Company for their outstanding selections. Jason Stoner and Stephen Rogers have a choreographed effort they employ when hosting their monthly Sunday Dinner. Stephen meets the guests, gets them a cocktail and whisks them out of the kitchen so that Jason can complete the last minute cooking. They discuss ahead of time the flow they need for the evening to be a success. The team love what they do and hope to bring the Sunday Dinner to a new level with an anticipated YouTube show that documents the monthly event from start to finish. Jason Stoner is well-known locally as being one of the principals behind Foodies of Lafayette alongside Heidi McDonald. Foodies of Lafayette spotlights area restaurants and culinary experiences in a positive way and will not allow negative feedback to destroy their aim of promoting local treasures. The site currently has over 60,400 active followers on Facebook and is growing exponentially each month.

Pouring Out Perfume Podcast | Unapologetic and Authentic Storytelling for Christian Women Finding Hope. *
68. A Parent's Worst Nightmare. 2-Year-Old Diagnosed with Stage 4 Neuroblastoma. A Family Walking Through Grief and Loss. Millie's Miracle 2020.

Pouring Out Perfume Podcast | Unapologetic and Authentic Storytelling for Christian Women Finding Hope. *

Play Episode Listen Later Oct 16, 2023 49:59 Transcription Available


Courtney Mount, Christian wife and mother of 9, faced her most significant challenge in 2019 when her 2-year-old daughter Millie was diagnosed with Stage 4 Neuroblastoma, an aggressive childhood cancer. After battling for a year, Millie went to heaven, and her family was left to walk their grief journey with Jesus as their guide and comforter.  Courtney has now used the tragic experience to help children and families that are dealing with cancer and wrote the book, Millie Finds Her Miracle, to help children with cancer. Millie's story is helping others, and her life and legacy still continues to live on in their hearts. Courtney Mount Book, Millie's Miracle. E-mail: Milliesmiracle2020@gmail.com Personal Website: Milliesmiracle.net FB: Millie's Miracle 2020    

Fireside America with Ryan Robbins
Surfing Pipeline and Saving Lives | Fireside America | Ep. 78 Jason Bitzer

Fireside America with Ryan Robbins

Play Episode Listen Later Sep 7, 2023 46:01


  Jason Bitzer is a New Jersey native turned Hawaii transplant who competed as a professional bodyboarder on the historic North Shore.  Jason is the founder of “Never Off Duty”, a non-profit that offers underprivileged, at-risk kids a pathway to emergency services such as lifeguarding, fire sciences, EMT and other civil servant career opportunities.  Now back in New Jersey, his most important mission is giving his 3.5 year-old son, James, the best care possible as he battles Stage 4 Neuroblastoma.  Entrepreneurial at heart, Jason is still chasing down his dream to build a concierge-level wave pool for surfers here at the Jersey Shore, while also training East Coast lifeguards to become elite practitioners.  Jason is a class act and easy to root for.  Alongside Fireside America alumni Emma Lipnicky's Liv Like a Unicorn Foundation, we are committed to helping the Bitzer Family navigate this new wave along with other families in similar circumstances.  Check out the links below for information on how you can get involved. ⬇️ SOCIALS AND SITES ⬇️

The Medbullets Step 2 & 3 Podcast
Oncology | Neuroblastoma

The Medbullets Step 2 & 3 Podcast

Play Episode Listen Later May 31, 2023 6:41


In this episode, we review the high-yield topic of Neuroblastoma ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the Oncology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets

Help and Hope Happen Here
Courtney Mount will talk about her daughter Millie who passed away from Neuroblastoma after both chemotherapy and immunotherapy did not work for her, and she will also talk about her book entitled Millie Finds Her Miracle.

Help and Hope Happen Here

Play Episode Listen Later May 15, 2023 42:35


On today's podcast Courtney Mount will talk about her daughter Millie who was diagnosed with Neuroblastoma when she was two years old in 2018 and passed away during Covid.  Courtney will talk about Millie's treatment of chemotherapy and then immunotherapy which never really helped, and the difficult last few days before her passing. Courtney will also talk about her book Millie Finds Her Miracle, which focuses on helping children have an easier time facing death, and how we can decide to teach children healthy ways to cope with loss. 

Help and Hope Happen Here
Dr. Adam Durbin who previously worked at the Dana Farber Cancer Institute and now works at St. Jude Childrens Research Hospital, will talk about his focus on 3 solid tumor cancers, Neuroblastoma, Osteosarcoma, and Rhabdomayosarcoma on today's podcast.

Help and Hope Happen Here

Play Episode Listen Later Apr 20, 2023 58:34


After doing both his residency and post doctorate at Dana Farber and Boston Children's Hospital and spending a number of years working in one of the best Pediatric Cancer Hospitals in the Country, Adam Durbin moved to Memphis and to another great facility in St. Jude Children's Research Hospital 2 years ago to continue his more than blossoming career in Pediatric Cancer. Focusing on Neuroblastoma, Osteosarcoma , and Rhabdomayosarcoma, Dr. Durbin will talk about his Durbin lab, and the many projects that he and his colleagues are working on to improve the lives of these kids who deserve and need so much help. 

From Our Home to Yours with Nancy Campbell
Episode 252: DEALING WITH CHILDHOOD CANCER

From Our Home to Yours with Nancy Campbell

Play Episode Listen Later Apr 11, 2023 38:17


Courtney Mount joins me today as she shares the heart rendering story of their two-year Millie (their ninth child) who was diagnosed with Stage 4 Neuroblastoma, an aggressive childhood cancer.

Help and Hope Happen Here
Michael and June Gossling will talk about their son Grant, who fought a heroic 22 month battle against Stage 4 Neuroblastoma before his passing on March 28th of 2016.

Help and Hope Happen Here

Play Episode Listen Later Mar 27, 2023 60:22


After feeling listless , having little appetite, and experiencing arm pain, 2 year old Grant Gossling was diagnosed with Stage 4 Neuroblastoma in June of 2014. On today's podcast, Michael and June Gossling will talk about their beloved son who fought a 22 month battle against this form of Pediatric Cancer before passing away on March 28th of 2016.  The Gossling's will also discuss their major focus on Pediatric Cancer advocacy, aligning themselves with the Rally Foundation and the company Oncoheroes Biosciences, as through their Grant Grace Foundation they wanted to help  fund an organization  that wants to have cutting edge medicines at the bedsides of these kids as quickly as humanly possible. 

Help and Hope Happen Here
On today's podcast, Terry Cechin will talk about his daughter Desi who passed away from Stage 4 High Risk Neuroblastoma at the age of 6 in 2016. Terry will be joined by Jessica McWhirter and they will discuss Desi and the Desi Strong Foundation.

Help and Hope Happen Here

Play Episode Listen Later Mar 23, 2023 44:59


Terry Cechin is the Founder, President and Chief Operating Officer of the Desi Strong Foundation. Terry started this foundation in honor of his daughter Desi who passed away from Stage 4 High Risk Neuroblastoma in March of 2016 at the age of 6. Terry will be joined on the podcast by Jessica McWhirter who is the Vice President of the Foundation. This foundation focuses on providing dolls to Pediatric Cancer patients who love them for their companionship and for the therapeutic tools that they provide.

Tactical Baby Gear Podcast
Finding out my daughter has cancer. Full Story (Neuroblastoma)

Tactical Baby Gear Podcast

Play Episode Listen Later Jan 27, 2023 78:59


In this episode, I share the story of my daughter's cancer diagnosis - neuroblastoma. It's been a long emotional, bumpy road, but we're getting through it with the love and support of our family and friends. If you're facing a cancer diagnosis for your child, know that you are not alone.

The Bert Show
Payton's Mom Shares The Sweet Letter She Wrote Him

The Bert Show

Play Episode Listen Later Mar 28, 2022 6:47


Meet Bert's Big Adventure kid, Payton aka Pjo!In April 2019, Pjo's mom and dad feared something was wrong. His mom, Deidra, got a call from Pjo's school that he had another fever (he was having them frequently), so they took him to Children's for testing.She was in such a fog that Deidre doesn't remember the conversation in the ER that night and can only remember that he was diagnosed with a mass on his spine- Stage 4 Neuroblastoma.Neuroblastoma is a type of cancer that forms in certain types of nerve tissue. It most frequently starts from one of the adrenal glands but can also develop in the neck, chest, abdomen, or spine.Pjo immediately started an aggressive round of treatment- including port placement and biopsy, 6 months of chemo, tumor resection, radiation, 2 stem cell transplants, proton radiation, 6 months of immunotherapy (cancer-free three months in!) port removal, and then 3 months on a trial drug to hopefully help prevent relapse.Unfortunately, Pjo relapsed. From February through November of 2021, Pjo started his second full round of aggressive treatment- starting all over again. However, thankfully, he is currently in a CHOA trial maintenance therapy that seems to be going well.Pjo has significant hearing loss, his left eye gets infected easily (because of the radiation), he has asthma and kidney damage because of such rigorous treatment. From Deidra's perspective, COVID has limited access to playrooms, etc. within the hospital and things that used to make it easier/more fun to be there. She also has a lack of time to be with other parents who “get it” because of COVID and being restricted in getting together.Before the start of the pandemic, Payton received Make-A-Wish granting him a Disney Cruise vacation, first-class flights to and from Orlando for his family, and a day spent swimming with dolphins. However, his wish was pushed back several times because of COVID-19 and his immunocompromised state while he was in treatment. Eventually, Payton's family decided it made more sense to swap his wish for a camper so they could enjoy social-distanced family time.When GAMOA heard about this, they really wanted to make magic happen and grant this sweet child his original wish of flying first-class and swimming with the dolphins! Once in Disney, GAMOA is sending a limo to pick up Payton and his family to take them for a once-in-a-lifetime experience at Discovery Cove.Discovery Cove is a unique all-inclusive day resort where you and your family will experience exciting animal encounters in a breathtaking tropical atmosphere. Payton and his family will get to snorkel with thousands of tropical fish, float through a relaxing lazy river, meet curious animal ambassadors or sunbathe on white sandy beaches.The family also has an exclusive private cabana for the day- so they can enjoy their day in paradise! The VIP Cabana service includes towel service, snacks, and a mini-fridge! And the best part is, Payton will get “nose to bottlenose” with a new friend during a one-on-one dolphin encounter. The signature dolphin swim experience begins with your group meeting a dolphin in one of their crystal clearswimming areas. Next, one of the animal care specialists will teach you all about dolphin habits, behaviors, their incredible communication abilities, and the relationships they build on a daily basis with these incredible animals. After that, each group member will get a chance to individually interact with a dolphin and learn about thatdolphin's personality through behaviors.We've even arranged for a personalized buoy delivery during your signature dolphin swim and our friends at Endeavor Air have graciously saved First-Class seating for Payton and his family! See acast.com/privacy for privacy and opt-out information. Become a member at https://plus.acast.com/s/the-bert-show.

The Bert Show
Meet Payton: He Finally Gets To Swim With The Dolphins

The Bert Show

Play Episode Listen Later Mar 24, 2022 13:25


Meet Bert's Big Adventure kid, Payton aka Pjo!In April 2019, Pjo's mom and dad feared something was wrong. His mom, Deidra, got a call from Pjo's school that he had another fever (he was having them frequently), so they took him to Children's for testing.She was in such a fog that Deidre doesn't remember the conversation in the ER that night and can only remember that he was diagnosed with a mass on his spine- Stage 4 Neuroblastoma.Neuroblastoma is a type of cancer that forms in certain types of nerve tissue. It most frequently starts from one of the adrenal glands but can also develop in the neck, chest, abdomen, or spine.Pjo immediately started an aggressive round of treatment- including port placement and biopsy, 6 months of chemo, tumor resection, radiation, 2 stem cell transplants, proton radiation, 6 months of immunotherapy (cancer-free three months in!) port removal, and then 3 months on a trial drug to hopefully help prevent relapse.Unfortunately, Pjo relapsed. From February through November of 2021, Pjo started his second full round of aggressive treatment- starting all over again. However, thankfully, he is currently in a CHOA trial maintenance therapy that seems to be going well.Pjo has significant hearing loss, his left eye gets infected easily (because of the radiation), he has asthma and kidney damage because of such rigorous treatment. From Deidra's perspective, COVID has limited access to playrooms, etc. within the hospital and things that used to make it easier/more fun to be there. She also has a lack of time to be with other parents who “get it” because of COVID and being restricted in getting together.Before the start of the pandemic, Payton received Make-A-Wish granting him a Disney Cruise vacation, first-class flights to and from Orlando for his family, and a day spent swimming with dolphins. However, his wish was pushed back several times because of COVID-19 and his immunocompromised state while he was in treatment. Eventually, Payton's family decided it made more sense to swap his wish for a camper so they could enjoy social-distanced family time.When GAMOA heard about this, they really wanted to make magic happen and grant this sweet child his original wish of flying first-class and swimming with the dolphins! Once in Disney, GAMOA is sending a limo to pick up Payton and his family to take them for a once-in-a-lifetime experience at Discovery Cove.Discovery Cove is a unique all-inclusive day resort where you and your family will experience exciting animal encounters in a breathtaking tropical atmosphere. Payton and his family will get to snorkel with thousands of tropical fish, float through a relaxing lazy river, meet curious animal ambassadors or sunbathe on white sandy beaches.The family also has an exclusive private cabana for the day- so they can enjoy their day in paradise! The VIP Cabana service includes towel service, snacks, and a mini-fridge! And the best part is, Payton will get “nose to bottlenose” with a new friend during a one-on-one dolphin encounter. The signature dolphin swim experience begins with your group meeting a dolphin in one of their crystal clearswimming areas. Next, one of the animal care specialists will teach you all about dolphin habits, behaviors, their incredible communication abilities, and the relationships they build on a daily basis with these incredible animals. After that, each group member will get a chance to individually interact with a dolphin and learn about thatdolphin's personality through behaviors.We've even arranged for a personalized buoy delivery during your signature dolphin swim and our friends at Endeavor Air have graciously saved First-Class seating for Payton and his family! See acast.com/privacy for privacy and opt-out information. Become a member at https://plus.acast.com/s/the-bert-show.