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38 episodes with Neuroblastoma
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3 episodes with Neuroblastoma
3 episodes with Neuroblastoma
3 episodes with Neuroblastoma
2 episodes with Neuroblastoma
3 episodes with Neuroblastoma
When 3 1/2 year old Angelina Phillips was diagnosed with Stage 4 Neuroblastoma in 2013, one oncologist actually thought that her diagnosis was so bad that her mom Danielle should consider not even giving her treatment, Angelina did receive treatment which included 3 relapses and was able to go on some memorable trips during her battle which ended with her passing just before Covid began in late February of 2020.
Gavin and Wendy Lindberg's son Evan was diagnosed with Stage 4 High Risk Neuroblastoma in 2006 when he was 3 years old. His diagnosis came on very quickly and his cancer spread very quickly. As I said on our podcast, anyone would need a strong stomach just to read about the litany of issues that Evan had to go through before his passing in October of 2010 including trips to 4 different hospitals, 4 relapses, and 4 brain surgeries.
Luke Grant chats with Kevin Apps, who is currently walking from Melbourne to Brisbane to raise money for children diagnosed with neuroblastoma cancer. He spoke to Luke about his goal and the reason behind it, after his close mate’s two-year-old grandson was diagnosed last year.See omnystudio.com/listener for privacy information.
Emily McHugh went through a very difficult treatment protocol after being diagnosed with Stage 4 High Risk Neuroblastoma in 2009 before she turned 4 years old. Originally Emily was thought to have had Leukemia. Emily also has had to deal with many side effects from her treatment but still has been able to live as good of a life as possible as she is now a sophomore in college, and will be spending her next academic year at Trinity College in Dublin, Ireland.
Kenny and Mike review, spot faith elements, and interview Natalie Dormer who stars as pioneering pediatric oncologist Audrey Evans in the biopic film Audrey's Children. Audrey Evans became Director of the Pediatric Oncology department at the renowned Children's Hospital of Philidelphia (CHOP) in 1969, and was a trailblazer as both the first department chief and one who introduced new methods for tracking and treating pediatric cancer. As a hospital with a strong national reputation, parents brought their children from all over the region and country. Out of concern for the parents who were often forced to sleep on the floor of the Oncology ward, Audrey purchased a home that could be used to offer free housing for parents. This home and program grew into the Ronald McDonald House Charities. Clancy Brown Co-stars as Dr. C. Everett Koop who served as chief of pediatric surgery at CHOP and was responsible for recriting Dr. Evans. Koop who would later serve as U.S. Surgeon General supported Dr. Evans in the early years of her career including her development of the Evans Staging System which charted Neuroblastoma disease progression and allowed for the most effective treatments. Faith Spotted: Faith grounded Audrey and inspired her to confront successfully the challenges and roadblocks she encountered as a trailblazing female department chair with new diagnostic and treament procedures. The film speaks to the purpose and power of calling and the transformative impact it can have in the lives of others. Audrey's calling was to serve children and families in the midst the most difficult circumstances. The film lifts up the importance of children echoing the teaching of Jesus to remove any barriers to children fully living into the life of their community and deserving of the attention of God. Audrey's story reflects the call to live one's life to the fullest, utilizing the gifts and talents God has given. Life is not to be wasted.
After a long period of time with severe stomach pain, Ryan and Courtney Cotton's daughter Julianna had to go through a test which completely missed an 11 cm tumor which was covering 70 percent of her belly before she finally received a proper diagnosis of Neuroblastoma in early 2022. Now 3 years later, Julianna has recovered from 2 relapses, currently has No Evidence of Disease , and is living the life of a normal 6 year old girl.
Taryn Jarboe was trying to console her 8 month old daughter June in June of 2021 as she had not been feeling well, and while examining her body, found a lump that was diagnosed as Neuroblastoma. June was supposed to go through an 18 month treatment program but while she was 10 months into her protocol, June developed a stomach bug and just before the radiation part of her treatment was supposed to begin, her doctors gave June scans which found that her Neuroblastoma had relapsed. Very unfortunately, there was only a 5 percent chance that June would survive this relapse and she passed away on March 13th of 2022.
Una mujer con neuroblastoma que fue tratada con células CAR-T cuando era una niña, permanece en remisión 18 años después. Es el caso de mayor duración tras una terapia de este tipo descrito hasta la fecha. Los resultados se publican en la revista Nature Medicine. Diego Sánchez, investigador ARAID en el Instituto de Investigación Sanitaria Aragón, explica este caso, y las perspectivas de Aragón en estas terapias. Además, Ágora conversa con Martín Resano, coordinador del grupo Métodos Rápidos de Análisis con Técnicas Espectroscópicas (MARTE) e investigador del I3A reconocido en Europa por su labor en el ámbito de la espectroquímica del plasma.
Una mujer con neuroblastoma que fue tratada con células CAR-T cuando era una niña, permanece en remisión 18 años después. Es el caso de mayor duración tras una terapia de este tipo descrito hasta la fecha. Los resultados se publican en la revista Nature Medicine. Diego Sánchez, investigador ARAID en el Instituto de Investigación Sanitaria Aragón, explica este caso, y las perspectivas de Aragón en estas terapias. Además, Ágora conversa con Martín Resano, coordinador del grupo Métodos Rápidos de Análisis con Técnicas Espectroscópicas (MARTE) e investigador del I3A reconocido en Europa por su labor en el ámbito de la espectroquímica del plasma.
Nancy and Richard Whipple's son Alexander spent 250 days as an inpatient at Tufts Floating Hospital for Children beginning in 2010 as a result of his Neuroblastoma diagnosis in March of 2010 when he was 8 months old. Alexander battled for 13 months with his form of Pediatric Cancer and 2 of his stays lasted for 46 and 38 days respectively. Alexander passed away on April 1st of 2011, after a 16 hour surgery which did not work out as planned.
The name Sloane means WARRIOR in Irish and it is no wonder that this now 4 year old girl was given that name by her parents Allison and Eric Donnelly. Sloane was diagnosed with Neuroblastoma when she was 2 years old in October of 2022 after her belly seemed to be bulging, which caught the attention of her parents while they were giving her a bath. Sloane now has been in remission for 18 months and is doing as well as possible.
After Jola Tapper's son Peter was diagnosed when he was 5 years old with Stage 4 Neuroblastoma in October of 2011, he went through a difficult treatment protocol which took him to having No Evidence of Disease on April 12th of 2012. For the next 7 1/2 years, even though he had difficulties, Peter was able to lead as normal and good of a life as possible. Then came December of 2019 and he relapsed by being diagnosed with Synovial Sarcoma. Peter was able to survive for the next 25 months, until his ultimate passing on January 17th of 2022, just 25 days before his 16th birthday.
Today's episode is a continuation of my conversation with Courtney Mount, whose daughter Millie died from neuroblastoma cancer in July of 2020. Courtney is a homeschooling mom of nine, a blogger, a freelance writer, and the author of the children's book "Millie Finds her Miracle" and the "Embracing a Miracle" devotional journal. Her latest book is titled “She Died, I Didn't: A Mother's Story of Surviving Grief, Sustaining Faith, and Recognizing Miracles Along the Way. Today, we reflect on the challenges of returning to church after the loss of a child, grief in the context of marriage, honoring our children's memories while giving ourselves permission to let go of some traditions, the impact grief can have on our health, and the process of becoming a writer. I believe our wide-ranging conversation will help you see that there truly is hope to be found after child loss, and that it is possible to live a full life even in the shadow of grief. I'm glad you've joined us today …Click HERE to listen to the first half of today's conversation with Courtney. Click HERE to listen to the first half of my previous conversation with Courtney, and click HERE to listen to the second half. Click HERE to purchase a copy of "She Died, I Didn't" on Amazon. It's available in paperback, hardback, and Kindle versions.Click HERE to purchase a copy of "Millie Finds Her Miracle" on Amazon. Click HERE to purchase a copy of the "Embracing a Miracle" devotional and companion journal. I would love to hear your thoughts on the show. Click here to send me a message!** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry. We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at: jill@whilewerewaiting.org
I'm excited to welcome another return guest to the podcast today, my friend Courtney Mount, whose daughter Millie went to Heaven in July of 2020 following a battle with neuroblastoma cancer. Courtney is a homeschooling mom of nine, a blogger, a freelance writer, and the author of the Millie Finds her Miracle collection. Her latest book is titled "She Died, I Didn't: A Mother's Story of Surviving Grief, Sustaining Faith, and Recognizing Miracles Along the Way." It's so easy, after the loss of child, to feel that everything good in your life has died … honestly, leaving some parents to wonder if life is still worth living. I believe my conversation with Courtney over the next two episodes will help you see that there truly is hope to be found, and that it is possible to live a full life, even in the shadow of grief. I'm glad you're here … Thanks for listening in! Click HERE to listen to the first half of my previous conversation with Courtney, and click HERE to listen to the second half. Click HERE to purchase a copy of "She Died, I Didn't" on Amazon. It's available in paperback, hardback, and Kindle versions.Click HERE to purchase a copy of "Millie Finds Her Miracle" on Amazon. Click HERE to purchase a copy of the "Embracing a Miracle" devotional and companion journal. I would love to hear your thoughts on the show. Click here to send me a message!** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry. We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at: jill@whilewerewaiting.org
Trista Temimi's daughter Valeria was born on September 11th of 2023 and immediately began having health issues. It took until January of 2024 to finally receive her diagnosis of Neuroblastoma. Since that time, Valeria has been battling this pediatric cancer and today, December 16th, she is undergoing scans to see how she is doing, with the hope being that she is at least stable and hopefully the news will be even better than that for this 15 month old little girl.
This time on Code WACK! Imagine learning that your baby girl has a brain tumor that's causing seizures and disrupting her development, and your health insurance company is denying coverage for the treatment her pediatric oncologist says she needs to survive and thrive? What would you do? Where did one mother turn when repeated health insurance denials delayed time-sensitive treatment to shrink her baby's tumor? To find out, we spoke to Dr. Eunice Stallman, a psychiatrist in Idaho and clinical faculty at the University of Washington School of Medicine and the University of Washington Boise Psychiatry Residency Program. Her daughter Zoey is two years old now and still undergoing medical treatment. This is the first episode in a two-part series. Check out the Transcript and Show Notes for more!
Amiee Mittleman was told about a group of parents that had children who had been diagnosed with Neuroblastoma in 2023. This group had formed an organization called Band of Parents. After doing her research Amiee joined the group and was fortunate enough to connect with a doctor that had discovered an antibody for Neuroblastoma patients. Amiee's then 2 1/2 year old son Julian had been diagnosed with Stage 4 High Risk Neuroblastoma in December of 2022 and during his treatment in 2023, this antibody was given to Julian. In July of 2023, Julian had No Evidence of disease, and now, 14 months later, that designation still stands. Amiee now serves on Band of Parents Board of Directors.
Welcome to the Momsday Bunker. Today Keri walks the bunkmates through what loneliness looks like and how we combat it during a momsday moment. Building your community and spirituality is the number one thing to starve out loneliness. Listen as Keri talks about Neuroblastoma, childhood cancer, loneliness, Isaiah 41:10, fear, community, spirituality, spiritual warfare, anger, boundaries, motherhood, MAMA TRAUMA, young moms, young motherhood, and military families. If you like this episode and want to connect other Mama Trauma Survivors to the Momsday Bunker, please like and share! Follow the Keri Momsday Prepper on Facebook and Keri_Henson_aka_Momsdayprepper for tips and tricks on preparedness. You can reach Keri at MomsdayPrepper
Megan Nelson's mom felt an odd lump as she was hugging her 2 year old granddaughter Ella before returning home after Megan had given birth to her son Francis in 2020. Upon hearing this, Megan took Ella to her pediatrician and shortly thereafter she was diagnosed with the Kidney Cancer Wilms Tumor before this diagnosis was changed 3 days later to Stage 4 High Risk Neuroblastoma. Megan and her family were living in Virginia at the time but moved to Los Angeles so Ella could get her treatment at the Children's Hospital of Los Angeles. Now 4 years later, Ella is doing well and is living her best life possible.
Giddy Up! Here we go again, bunkmates! Welcome back Margaret McCormick from Third Chance Coaching. In this episode Keri and Margaret revisit Keri's first momsday moment; childhood cancer. Super G's journey with Neuroblastoma from the momma's perspective and how coaching would have 100% made going through it healthier! When momma is healthy, baby is healthier! We need to put our own oxygen masks on first before we can help those around us. We talk about childhood cancer, Neuroblastoma, cancer survivor, childhood cancer survivor, life coaching, coaching, the importance of drinking water, health, trauma, MAMA TRAUMA, healing from trauma, EMDR, Momsday Moments, and so much more!! If you want to know more about life coaching please reach out to Margaret here ---> Third Chance Coaching You can find Margaret here too -->> Facebook If you like this episode and want to connect other Mama Trauma Survivors to the Momsday Bunker, please like and share! Follow the Keri Momsday Prepper on Facebook and Keri_Henson_aka_Momsdayprepper for tips and tricks on preparedness. You can reach Keri at MomsdayPrepper.
Today on our show, we bring you a story by Farida Taha. Farida writes about losing her daughter to cancer and how she's moving forward. We talk a lot about loss on our podcast, because writing is how so many people process grief. We believe writing opens the heart, clears the mind, and helps us understand and process. In this essay, Farida throws out some incredibly poignant lines that reveal intense pain and so much hope for the future.Farida Taha is a writer and mother of three. She is originally from New York City and resides in Miami, FL. She is an avid listener and former writing class radio student. You can find her on Instagram @faridae.If you're looking for a writing coach to help your student with college application essays, contact Allison Langer.Writing Class Radio is hosted by Allison Langer and Andrea Askowitz. Audio production by Matt Cundill, Evan Surminski, and Aiden Glassey at the Sound Off Media Company. Theme music is by Justina Shandler.There's more writing class on our website including stories we study, editing resources, video classes, writing retreats, and live online classes. Join our writing community by following us on Patreon. If you want to write with us every week, you can join our First Draft weekly writers groups. You have the option to join Allison on Tuesdays 12-1 ET and/or Mondays with Eduardo Winck 8-9 pm ET. You'll write to a prompt and share what you wrote. If you're a business owner, community activist, group that needs healing, entrepreneur, or scientist and you want to help your team write better, check out all the classes we offer on our website, writingclassradio.com.Join the community that comes together for instruction, an excuse to write, and the support from other writers. To learn more, go to www.Patreon.com/writingclassradio. Or sign up HERE for First Draft for a FREE Zoom link.A new episode will drop every other WEDNESDAY. There's no better way to understand ourselves and each other, than by writing and sharing our stories. Everyone has a story. What's yours?See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Heather Roy's 10 year old daughter had just completed a 10 K road race and was seemingly very healthy in September of 2018 except for a nagging pain in her right side that would not go away. This pain, thought to possibly be appendicitis, turned out to be Stage 4 High Risk Neuroblastoma, which was diagnosed at a much older age than this form of pediatric cancer is normally diagnosed. Evelyn struggled for 18 months with this disease before passing away in February of 2020.
When Ramona Jarvis's 19 month old daughter Leila was running on and off fevers, she was told by Leila's doctors that these were caused by viruses and that her fevers would go away. Unfortunately that was not the case and during that summer of 2017 , Leila was diagnosed with High Risk Stage 4 Neuroblastoma. After a harrowing regiment of treatments which included 132 days of being an inpatient, Leila was put on a DFMO Clinical Trial at the Arnold Palmer Children's Hospital in November of 2018 which ended in 2020. Today, Leila is 4 years past this Clinical Trial and thankfully is both doing and feeling well.
Today's Raise the Line guest has a simple but powerful message for medical providers, born of a mother's heartbreak. “It's going to be rare in your career to meet a zebra but the impact you can have is phenomenal. An early diagnosis could make the difference between life and death for these children,” says Bethan Keall who lost her young daughter Matilda (Tilly) in 2022 to neuroblastoma, a rare cancer most commonly found in children. Because some symptoms of the disease can be easily attributed to other causes, early diagnosis is difficult, particularly if providers are not on the lookout for it. Tilly's diagnosis of an aggressive form of neuroblastoma introduced Bethan and her husband to the unfortunate realities of a lack of funding and coordination in the UK around pediatric oncology. “For childhood cancer you really need as much collaboration among doctors as possible to understand how treatments can get better because there are relatively few cases,” she explains to host Lindsey Smith. In coping with Tilly's tragic death at the age of four, her parents have dedicated themselves to Neuroblastoma UK to support research efforts and have benefitted from the emotional and social support provided by a charity called Jak's Den, founded by the family of a victim of childhood cancer. This is a wrenching, illuminating episode in our Year of the Zebra series offering important insights from a parent's perspective for providers and policymakers alike. Mentioned in this episode: Jak's Den https://www.teamjak.org.uk/Neuroblastoma UK https://www.neuroblastoma.org.uk/
Michael Crossland has been a fighter since birth. He defied the odds of surviving Neuroblastoma - a rare life-threatening cancer, and was the sole survivor of a cancer drug trial. He speaks to Ant about his lifetime of challenges and lessons. When the odds are stacked against him, time after time - Michael defies those odds. And, he's on a journey to inspire others along the way. LINKS Learn more about Michael Crossland at michaelcrossland.com Follow Michael on Instagram @michaelcrossland Follow Ant on Instagram, X, and Facebook Learn more about Ant on his website antmiddleton.com Follow Nova Podcasts on Instagram for videos from the podcast and behind the scenes content – @novapodcastsofficial. CREDITSHost: Ant MiddletonEditor: Adrian WaltonExecutive Producers: Anna Henvest & Edwina StottManaging Producer: Elle BeattieSee omnystudio.com/listener for privacy information.
Maurice Ahern and his family were living in China in 2010 when his 1 year old son Micah was diagnosed with Neuroblastoma. Maurice will talk about quickly moving his family to Orlando to have Micah's surgery and his 6 year ordeal fighting this disease which ended with his passing in July of 2016. Maurice will also talk about his love for the Food Industry and for Baking, which he has used for the past 7 years to help honor the memory of Micah and keep his legacy alive.
Episode 415 Transcript: Welcome to Cannabis Health Radio, a podcast where we share stories from people around the world who are using cannabis as medicine. The information is meant to raise awareness about the health benefits of cannabis,which should not be taken as medical advice. Now, here are your hosts, Ian Jessop, and Corrie Yelland Welcome to the cannabis health radio podcast.I'm Ian Jessop. And I'm Corrie Yelland. In the years we've been doing this program, we've only had one interview related to neuroblastoma, which is a cancer that develops from immature nerve cells found in several areas of the body. It most commonly affects children aged five or younger. Our guest today is going to tell us the story of her son diagnosed with neuroblastoma as an adult.And joining us from London in the UK is Catherine who doesn't want us to use her last name so we won't. Catherine thanks for doing this and you know in reading the write -up you sent us I can't imagine what your son has gone through and you along with him.Now it's been nearly five years since the original diagnosis. What is the journey being like for him and and yourself? Wow,that's a big question. Well, when he was first diagnosed, it was such a shock because the tumor started in his smell nerve and it had eaten away at the sinus bones behind his eyes, wrapped around his eyes and it was as big as a small orange. It was enormous and we just couldn't believe it. He went into hospital and was kept in because of his saline levels and a nose bleed and we were so blessed because an amazing ENT surgeon was doing rounds the next day after his admittance and she simply said to us is the nose nosebleed always on one side and she sent him straight for a scan and she brought us into a side room and showed us the images and and it was really she said she you know like looking at the literature they tried to find people with this situation and it was as you say it's normally in children it had also eaten away through the base of the skull and the tumor had pushed up into the brain.So from the imaging they didn't know if it was entangled with the brain, they didn't know if it was entangled with the eyes. So we had, she had a month to stabilize his condition and he spent quite a while in intensive care because of the salt levels in his body and then was was prepared for surgery.Now I work with Reiki and I have a lot of friends who are complementary health practitioners and we kind of got on the case so everybody started sending Reiki, he went immediately on homeopathy, we tried to get cannabis at that point but in England we didn't have the capacity to get it at that point and then he had a very like the operation line.About seven hours and they went in through his nose, cut out the tumour through his nose, another surgeon they cut out a diamond shaped out of his forehead, went in through his brain so he had an ENT surgeon and a neurosurgeon and they basically spent eight hours cutting out that tumour. Now it turned out it hadn't gone into the brain and it hadn't hadn't he didn't lose his eyes and it didn't damage his brain so that was the prognosis that that they could both happen and I really think that was a miracle at that stage that and neither of those things happened and when he went just for listeners how old was your son at that stage 20 22,22. Thank you. Yeah, so they didn't know how long it had been growing for because normally it's quite a slow -growing tumor and they reckoned it could have been you know since probably the age of 16 or 17.Now I do remember when he was 16 he fell down a stairs head first, face first and smashed up his nose and and all of that kind, like, you know, ended up quite battered. And, you know, that could have been a shock that started it at that stage. That was the, you know, who knows, it could have been latent there from when he was a child.I don't, you know, nobody knows that kind of thing. But yes, it's very rare and very rare in adults. So for him,it was like they felt they had got all the tumor out but they wanted him to do what's that word like radiotherapy just in case you know even though there was no visible sign of any cancer left and that in itself was a miracle that they'd managed to remove so much tumor from such a tricky area.So now he has no smell nerve, they managed to make a seal between the brain and the sinuses. He did suffer a period of brain inflammation. And you know, we had a few tricky days, very tricky days in intensive care where he was, you know, hallucinating and brain fever and all of that kind of stuff. And funny, when he went for the radiotherapy a few months later. later the oncologist said oh right hello so I didn't I wasn't expecting such a cosmetically pleasing result when he read Sean's case and I thought it was amazing that I mean it really felt like he was blessed and that he was blessed that he didn't lose his eye I mean losing your smell is one thing you know he'll never get that back and But losing your eye isyou know quite a different scenario. So, yeah Catherine what was his response to getting this diagnosis because he's a young man when he gets this diagnosis and Last thing you're thinking about in your early 20s is getting sick.It's about you want to get out there and have some fun Yeah, I mean he's quite incredible Corey He he was he really is he's kind of very inquisitive by nature, so he was really into the whole process of what the surgery was. He got the surgeon to take photos of the operation and then they were, because she was doing it as a lecture operation and there was lots of people watching because it was quite a complex operation.So I remember she and he going through all the photos of the operation afterwards. Now I couldn't look at them. I mean, I just, it was just ghastly. But he kind of approached it, well, this is just something I've got to get through and I've got to get on with it. And, you know, he was so grateful to all the staff at the hospital. And, you know,we met some amazing people and we met some incredibly kind people. And he had this experience. experience that he never imagined he'd have and it was just well,I'm just going to get on with it. So he was in the middle of his second year of his degree and they said to him to stop studying and he said I can't if I haven't got something to hang on to I won't get through this.So he carried on doing his studies. I remember when he was having his radio therapy he was getting the having a treatment then getting the train down to sit an exam,then coming back to have his treatment the next day, and that he was having them timetable his treatments around his exams. And now we're talking at two opposite ends of the country, you know.So it was really extraordinary. He was just so determined that this wasn't going to stop him and impact on his life. you know, so yeah.And they really felt that the chances of a recurrence of a neuroblastoma are apparently quite low as well, so and fortunately for him,the neuroblastoma doesn't react with chemo, so they didn't suggest doing chemo with him at that stage either, so come kind of...January, so he was diagnosed in August 2019, come January 2020. He was ready for his term abroad, he went off to Italy,and he wanted to work at the Ferrari faculty in Modena University. That has been a dream of his, because they have this amazing wind tunnel,and he came back two weeks later. later for a medical appointment on the Friday And on the Sunday, Italy went into lockdown with coronavirus So, I mean,I felt he was very blessed that he wasn't locked down in a city where he didn't know anyone and uni was Stranded and everything and I felt really blessed. He was here The fact that he didn't have any of his possessions was tricky.Um, but yeah, so he he kind of got off with it, to be honest. And he hoped it was done, but they had told him that if he doesn't have a recurrence for two years,he's got a much stronger chance of staying free of cancer. So his second diagnosis was a month before that two years was up. So that was really good.So he got his results of a biopsy. on his left lymph node the day that he got his results of a first in his masters and his degree.So it was a really bittersweet day, but that was a tumor in his left lymph node,much less scary surgery, much more straightforward operation. and again the medical model was go in,we'll take out all your left lymph nodes, fortunately they decided not to do the right ones as well, at the same time I was really saying like God you need those lymph nodes,you know they're just so important for keeping your body clean and everything, but yeah so he went in for surgery in so that was I think 21,and radiotherapy again to the whole neck area. And I think at that stage,that was much more difficult for him because it was like, well here I am, I want to get started with my life. And actually he couldn't face. he went to Whistler in Canada,he went skiing and he just didn't feel confident enough to go out into the employment market, he was just like I just want to have some adventures,I just want to kick back, it's been really grim, so he did ski season in Whistler that winter. winter and then stayed on that summer and then again The next year again,just couldn't think about the future and he said I don't I just can't think about a future So I don't know if I have a future, you know, I think when you face death like that So,um, yeah, so he did two years in Whistler and he was just coming to the end of his time in Whistler This was 2023 and we went out to see him just shortly before he came back and he was starting to look for jobs and starting to feel that maybe he could do that and he started to lose the capacity to speak and his words were slurring and he couldn't get his mouth to form around a word and I remember we weresitting, we were on Sunday Sunshine Coast staying with some friends and he was like, "Well, I've looked up and it's either like some form of neurological disease or it's a brain tumor." And we were like,"Okay, Mr. Google, you know, his first person used to say to him, "Get off Google," you know. So, yeah, so the next couple of days later,he was really bad at work and he went to the doctor in Whistler and because of ski accidents and everything, they had a CT scanner there, so they put him in the CT scanner. Massive,massive brain tumour. A large plumber, a small satsuma was the definition of it and I've seen images of it and it was huge.So that was in the end. and I'm talking about a guy who's still cycling, still skiing, still hiking, you know, doing all of that kind of stuff. He'd had a checkup in January,full scans in January. He's on annual checkups at this stage and there was nothing. So it had grown from nothing to that size in,well, less than nine months. - Mm -hmm. - And, yeah. So it was... really massive. So he was rushed straight to hospital in Vancouver and surgeon,amazing surgeon. Like really, I have to say, I thought that the whole team there were incredible. And there was a lot of risk to his speech,his movement, the whole movement of his upper body, his cognitive skills. It was in the, the left sylvian fissure between the two lobes, between the frontal lobe and the side lobe.Fortunately it was growing out of one point and because it was in the fissure it hadn't actually connected to either side of those two lobes. So again, you know,as soon as I found out about it, I got an email sent. sent friends, so many people sending him Reiki. He was in Buddhist prayer, you know, temples. He was,you know, just had like all the Irish were, you know, had him on the altar and, you know, it just so many blessings coming towards him. He had the surgery.They couldn't take out all of the tumor because part of it was under a major blood vessel and the surgeon judged it too risky. to his brain health, you know, to dig any further.And I think that was a really good call. I remember when he came up to intensive care after surgery, he just put Sean through this kind of really quick fire, a series of tests of reflexes and words and everything, and just his face, the relief that there was no... brain damage from the operation. So there was a one centimeter piece of tumor left.And because we're in Vancouver, I had a friend of mine rang me and said she knew someone on the East Coast to clear themselves of cancer with cannabis.So I said, "Can you tell me?" who it is?" So they said, "Well, the best person to speak to is Corrie, but I don't know if you'll be able to get hold of her." So I was Googling Corrie.I tried to get it in 2019, hadn't been able to get it. And then the next morning, I sent Corrie a message, and the next morning Corrie had an appointment to do an interview,and they had technical difficulties. difficulties so she sent me a message and said if you can jump on the phone now I can talk to you so I just felt it was all again more blessings you know more miracles coming so yeah so I think we you know this was all really difficult for him this third tumor and and this is the first time he was told that he could die.He'd never been told he could die before you know so this one was quite major. It's funny because the other one was in the brain as you know pushed up into the brain as well but somehow I mean he felt this surgery was much easier but then I think he wasn't aware of all the times he he was in delirium and in and out and stuff,you know. But I think it was difficult because he didn't know if he could keep going on with just being ill, just being ill, feeling like I'm talking a sportsman,you know, who he doesn't drink, he doesn't smoke, he eats well, you know, he's a really sweet guy. Yeah,so it was just like, "How can I stop this happening?" So he wanted to come home and he needed to wait until he had permission to fly because they needed to make sure his wound site had healed up enough and stuff like that.So we got him on some oils in Canada. thanks just, yeah that was really good and that was helping him,but then he had to come back here and by the time he came back in November and they scanned him,the tumour had massively grown again. It was, I mean it was really... very aggressive, growing really,really aggressively. It was not quite half the size it had been when it was first operated on. It was filling the cavity, the brain cavity was still there.And they referred them back for further surgery, which was ruled out as being too dangerous. And And they put him,started him ready for radiotherapy. So at this stage, we'd been in touch with somebody here. We'd got cannabis oil and a load of detoxing stuff.So he was taking that three times a day. He was going seeing a counselor, which was the first time he'd seen a counselor. So here and I just it and it was like you have to deal with physical,mental, emotional and spiritual. You have to go at this with all levels because otherwise, you know, if you really want to know whether you can be in control of the cancer or not,you know, you need to do this. So he's been amazing, you know, he's done the oil. diligently, he's done his detoxing,he's been on turkey tail mushrooms, he's been having reiki every day, he's been on homeopathy, he's been having acupuncture three times a week,he's been on a totally vegan alkaline diet since, like he was vegetarian before but he was eating a lot of dairy produce and you know he was eating occasional eggs and stuff so it's just everything got cut out you know every scrap of sugar got cut out every everything and the oncologist said to him in November that it was asking a lot of radiotherapy to clear the tumor that he felt that a good result would be ifit stopped growing basically. basically. And he was wonderful. We've lost Milla Karyankar.Yeah, he was wonderful. Like the consultant was really treated Sean like a human being, you know, just really fantastic. And we just thought,well, no, we're, you know, we're going to do everything and see, see what happens. And so the whole way through radiotherapy, they wouldn't do a scan until,like they weren't going to do another scan until I think three weeks after the radiotherapy finished. So it started, so the diagnosis where it was growing and growing and growing was November,2023, last November. And then radiotherapy started at the beginning of December, radiotherapy all through December. December into January, and then they scanned him the middle of February.And when they did the scan, there was like the brain had all closed up and the tumor, it looked like there might be a tiny element of the tumor left,but it was completely like you know from where it was before it was like just all gone. And he didn't know. whether it was tumour still, but I've seen so many scans of cancer at this stage.It didn't have the bright white look that cancer has on a scan. It was kind of blurry around the edges, you know, didn't have defined digest.So they spoke with us about chemo at that stage because they said this is chemo is the only thing else that we have, but we wanted to adopt a wait -and -see policy,so they said they'd scan again in another month, so they scanned them in the middle of March and there'd been no change in that little blob that was left, so they think it's just scar tissue from the original wound site,from surgery and everything. So, it's been a miracle. It's been an absolute miracle. And I have to say, you know, the oncologist was stunned,stunned. And the biggest impact, Corey, is that Sean knows now how to stay cancer -free because he knows it wasn't just the medics.He knows it was everything else that he did. You know? know. Right, right. When he, when he was just talking a little about the dosing of his oil. So how much was he doing and what method?I mean, I know he was on a multi -stream four to one ratio that much. I know. But was he doing it all rectally? Yes, absolutely, all rectally.And one of the things, one of the reasons he didn't, this is really important. One of the reasons he didn't want to do. do the oils before is he wasn't prepared to take anything orally because he can't bear that feeling of loss of control or high or anything.So when you advise that he could take it rectally, that was such a game changer for him. You know, it was just like, yes, I can do this. So he was having one meal three times a day rectally.(mumbles) November. So that's every day and now he's gone on to a maintenance dose of eight drops a day and he's going to experiment between,he's still taking rectally rather than taking orally and what he did is he got a narrower syringe like a very narrow syringe.because he ended up at one stage. The biggest impact, and we think it was the steroids, not the cannabis, was he had to do a poo frequently.So he would do his treatment, then he wanted to go for a run and then he was needing to go for a poo. and this was really impacting on him.But it turned out was the steroids that he was on to stop the swelling in the brain while he was having radiotherapy had impacted on the muscles in his anus and his buttocks so much that that's why he couldn't stop.But anyway, he ended up using a smaller syringe. syringe which he found easier to insert and then you know,he could still do the one mil with that. So yeah, that was that was that's still his preferred method. And I think we'll see whether he goes to having it under the tongue as he goes along because he's only been on this maintenance dose now for three weeks.or something like that, you know. So, yeah. And he's very happy to continue taking that for the rest of his life. And he said to me, you know, it was funny, because he was doing so many things.And some people were saying to me, well, how do you know what's working? And I said, I don't need to know what's working, because everything's working together, you know, like everything's working holistically together.So, he said, but I do know know that the cannabis oil is the most important thing that I'm doing and if I miss anything that is the thing I don't miss you know so I thought that was really interesting because I was so pleased this time to be able to get it because I thought now he just has a way of keeping the cancer at bay you know so he's going to stay on his vegan alkaline diet that's an brainer for him,no alcohol, no brainer, no sugar. And he's finding ways to live, and as you can imagine living in London, where eating out is such a big thing and night -slubbing are such a big thing,you know. But he's wanting to find people to have outdoor adventures with. And, you know, he's been hiking on the South Downs and he's been, you know, doing some wild camping and he's training for a marathon.You can believe it. So yeah, I mean, he's pretty determined. And when he got the diagnosis that he was clear, he walked out and he said,now I know I will live to see another summer. So I was crying. I mean, you know, 26 year old, you know,nearly five years with cancer and yeah, yeah. An extremely aggressive, you know, as it turns out to me, it's extremely aggressive in this case.And what he's accomplished is nothing short of a miracle. I mean, it's absolutely amazing. Yeah, in such a short time. Yeah,to turn around from having a tumor that's re -growing so aggressively in November and then by February, it's gone. I'd say that's pretty good.Catherine, did this change your attitude about cannabis? Oh, well, yeah. Listen, I work as a healer.healer. So, you know, and I met Charmin and, you know, I work with Reiki and it's incredible plant medicine. I just, what's so frustrating to me is,you know, the value of what he had with the multistrains and the whole product and all of that. And they think, oh, well, this compound and this compound and then they strip it out and they take it,all these different, elements and separate them. To me you don't understand, like they don't understand what they're doing, they don't understand how topically the whole plant works together and all the different strains work together.So it's kind of nature creates this incredible product and then you mess around with it and you take out half compounds, you know it doesn't make any sense. So that's why I'm on orchestra.this the UK company GW pharmaceuticals who does does that is it GW pharmaceuticals yeah I think so yeah but I think it's the same in Canada now I mean my friend who I was staying with in Vancouver her son is growing on the roof and all the rest of it but when she talked about the medicinal stuff she said since the new legislation it's just got so much worse because now you can't get the whole product you knowyeah so it's like well we legalize this proper not this part and that's just because you don't understand you know and I think just because you don't understand doesn't mean you you can mess with it you know yeah yeah you know you know Catherine I have a I have a saying that God what the Creator Creator,whatever your belief system did not put that plant on the earth with all these properties in it for it to all be separated, period. Yeah, yeah. And I have to say one of the things the homeopathy has been doing is working to counteract all the like the radiotherapy and the steroids and doing a cleaning from that.And it's like, I feel we've got one thing that's helping clean up. up all the drugs. And, you know, the medical companies will say, well, there's nothing in homeopathy. There's, you know, but it's energy medicine.Yeah. And with cannabis, I think you've got the energy medicine element as well as the physical. You know, for me, it's working on all the levels, which is one of the real gifts that it has,because not every plant has that. No, absolutely. Catherine, you remember when we started this interview, I asked you how these five years have been for you? And you said it was a good question,but you kind of, you didn't answer it. Okay. I'm used to interviewing politicians. So I saw you slide by that one.How is it being for you and your son? Let's start with you first. I Have to say it's been really intense one of the things that's been difficult is because I work as a healer I Immediately had a role to play and for my husband.He felt he didn't have a role to play and that was difficult You know that was difficult for him and it was difficult for our marriage. I think it was difficult balancing.I have three sons, so it was difficult remembering, okay, I need to, I need to be here for all of them. Um, and it was difficult to let him go when I needed to let him go and hope that he was well and,you know, let him get on with his life. It's also been such a profound gift to me. get to know somebody so well and to have such a deep relationship with my eldest son,you know, that's been an extraordinary gift. And I've seen things I would never have seen in life. I mean, I've seen incredible things in hospitals that I've become so intimate with hospitals in a way for someone who's never been ill.you know, just witnessing things that go on when people are really unwell has been a gift and it's been, I think one of the biggest gifts Sean has given many people is the capacity to give to him because he's just the first night in intensive care after the diagnosis.He said, "Mom, you must contact everybody you know and ask." them for help and ask them for Reiki." And I promised him that and that was so challenging for me because normally I'm quite a private person but I contacted everybody and I mean in excess of 100 people were sending him healing and then people were just coming up going,"I heard about your son and can I help and I can do this. Would you like me to do that for him? I can do this. Would you like me to do that?" and he was so open to being helped this whole journey.The openness and the exploration was just so rich. I can't explain it.And he will say he doesn't view it as a bad thing at all. It's just been a very enriching journey. Yeah. And when he looked like he might die in November,he said, I have no regrets. He said, I've done everything I wanted to do. And if I go now, I have no regrets. You know, he'd had his two years in Whistler,he'd jumped off mountains, he'd been up in a helicopter and jumped off a mountain, he'd gone hiking overnight out in nowhere. You know, he'd just just had all of these adventures and he never let his health stop him having adventures,you know, because he said, "If I can't live, there's no point in being here," you know. So yeah, and he's really shown all of us how to live.Well, he certainly has. I mean, what you said, "If I can't live, there's no point in being." being here. I mean, that is a great comment about most of the world who just exist from day to day.And without any appreciation for life itself. And when you get into a life -threatening situation like that, you do have an appreciation for life, a renewed appreciation. And I think that's what he has.And you yourself I imagine, have been given renewed appreciation for the life, his life, and you look at your life differently,do you? - Oh, absolutely, absolutely, yeah. Yeah, I mean, both my husband and I are working part -time where planting trees and making time in nature and all of that kind of stuff.And we've just trimmed our financial outgo. to match our incomeings and just gone, no, we can't wait for some future Nirvana point,you know, we need to live now. Yeah. Yeah. And that's interesting, because so many people spend so much of their life being afraid to die,that they don't live, you know. And I think we have completely flipped that and actually, you you know, if I was to go tomorrow, I have no regrets You know, there's lots of things I still want to do But I feel that,you know, we're having adventures in the moment Just not putting things off anymore, you know, because that's a very big thing. I'll do that next year I'll do that next year, you know,and next year never comes. So damn it. Catherine do it now. Yeah Yeah Yeah, yeah, yeah. - Catherine, it's a wonderful story you've told us about your son and what he's gone through and what the two of you,what you've gone through as a family. And I think other people listening to what you said will be inspired. And I know that somewhere in the world you will change a life or a number of lives from what you've told us.We greatly appreciate it. - Thank you so much. Thank you. And no, there's always hope. If you have a will to live, the universe responds to that and will tell you how you can do it.That's the biggest lesson I've learned in all of this. Before we go, I want to let our listeners know that you can help us spread the word about the amazing, often life -saving health benefits of cannabis. cannabis, just by sharing the podcast, writing a review, or rating us. We very much appreciate the help of everyone who's done that already.And we really like the five -star ratings. We'd also like to thank those of you who support the show by making a one -time donation or a monthly donation on our Patreon page, which you can do for as little as $5 a month. It'll help to keep us running. You'll find out how to do that on our website, cannabishealthradio .com.Thank you for your support. It means so much to us. And we'll be back again next week with another episode of Cannabis Health Radio. - Thanks for listening.For more information and to search previous podcasts, visit our website, cannabishealthradio .com. Visit our website: CannabisHealthRadio.comFollow us on Facebook.Find us on Rumble.
This week we are discussing The Dead Files “Deadly Force” (Season 11 Episode 13) which aired October 2, 2024. Join us while we discuss college drinking experiences, the meaning of handing someone a hankie, and if regular old vampires should still be considered energy vampires. Also listen to us trying to do math to figure out the ages of people in a story in history.Content Warning:In this episode we mention throwing up from heavy drinking, deep depression, murder, suicide, graphic nightmares, inappropriate ghostly behavior, and childhood cancer, as well as other cancers. So trigger warning for those who need it. Also, we swear.The Activity Continues is a paranormal podcast where soul friends, Amy, Megan, and AP chat about pets, true crime, ghost stories, haunts, dreams, and other paranormal stuff including the TV show, The Dead Files. We also sometimes interview interesting people, whether it be a paranormal professional, a Dead Files client, or a listener with spooky stories.So, grab your beverage of choice, and join us where… The Activity Continues.This episode was recorded on March 4, 2024, and released on April 4, 2024.Episode links:Dead Files Facebook discussion group https://www.facebook.com/groups/349685608487221Richard J.Bolleshttps://en.wikipedia.org/wiki/Richard_%22Dicky%22_J._Bolleshttps://everglades.fiu.edu/DCC/everglades/reclaim/bios/bolles.htmAfter his death: https://www.whitewayrealty.com/old-class-photos/the-bolles-school/the-history-of-the-bolles-schoolNapoleon of Finance:(mentions the Dead Files): https://e-governmentresearch.blogspot.com/2019/11/napoleon-of-finance-swindled-local.htmlFlorida Fruit Lands Co. https://jacquithurlowlippisch.com/tag/bolles-founded-the-first-of-his-florida-enterprises/Pulmonary Edema and Neuroblastoma:https://www.cancer.net/cancer-types/neuroblastoma-childhoodhttps://www.mayoclinic.org/diseases-conditions/pulmonary-edema/symptoms-causes/syc-20377009https://www.google.com/amp/s/amp.cancer.org/cancer/types/neuroblastoma/detection-diagnosis-staging/survival-rates.htmlhttps://www.mayoclinic.org/diseases-conditions/neuroblastoma/symptoms-causes/syc-20351017Spirit Mechanixhttps://www.instagram.com/spirit.mechanixhttps://www.patreon.com/spirit_mechanix/posts?showTiersModal=truehttps://spiritmechanix.com/Disclaimer:This podcast is in no way affiliated with Warner Brothers, HBOMax, the Travel Channel, Painless TV, or the TV show The Dead Files or any of its cast or crew. We're just fans that love the show and want to build a community of like-minded people who would enjoy hanging out and discussing the episodes and similar content.Credits:Hosted by: Amy Lotsberg, Megan Simmons, and Amy PiersakProduction, Artwork, and Editing: Amy Lotsberg at Collected Sounds Media, LLC.Theme song. “Ghost Story” and segment music by Cannelle https://melissaoliveri.com Socials and other goodies:Our website, https://www.theactivitycontinues.com/ Facebook Page: https://www.facebook.com/theactivitycontinues Instagram: https://www.instagram.com/theactivitycontinues/ Twitter: https://twitter.com/TheActivityCont Blog for extras: https://www.theactivitycontinues.com/blog/Patreon: https://www.patreon.com/theactivitycontinuesYouTube: https://bit.ly/TAC_videos Newsletter sign-up: http://eepurl.com/hWnBLL SEND US YOUR PARANORMAL STORIES!Email: theactivitycontinues@gmail.com and maybe it will be read on the show!Or visit our website, https://www.theactivitycontinues.com/ and click on the microphone icon to leave a message and maybe it will be played on the show!BE OUR GUEST!Are you a The Dead Files client, or a paranormal professional, and would be interested in being interviewed on our show? Let us know by filling out our guest form:https://www.theactivitycontinues.com/guests/intake/Affiliates/SponsorsPlease see our Store page for all the links for all our affiliates. https://www.theactivitycontinues.com/store/ Thank you for listening, take care of yourselves. We'll see you next week!A Paranormal PodcastSupport this podcast at — https://redcircle.com/collected-sounds2/donations
Coffee so strong it'll walk into your cup! You'll never meet a stronger mom. Mardon fought hard for her Dino Jake as he battled Neuroblastoma; the dirtiest of childhood cancers. In this episode we talk about childhood cancer conspiracies, what it's like in those first few moments of diagnosis, and the end of the journey. Take care of yourself as you listen to Mardon's story as she navigates the loss of a child under unimaginable circumstances while finding beauty in the ashes. Grab yourself a cup of coffee and join us today in the Momsday Bunker with Keri Henson!
In April of 2023 Vickie Stevens and Don McCarthy's little son Rio was experiencing a loss of appetite, limping instead of walking, and losing energy. After a stay at a local hospital did not solve the question of what was wrong with Rio, he was transferred to a large hospital in London and was finally diagnosed with Stage 4 Neuroblastoma. Rio is now into his 8th month of treatment and the hope is that he will at some point be able to travel to Memorial Sloan Kettering in New York to take a drug that has proven to be highly successful in treating Rio's form of Neuroblastoma . Vickie and Don will also talk about the organization Solving Kids Cancer which has proven to be very helpful for their family and many others in England. www.solvingkidscancer.org.uk/children/rio+1
In this episode, we review the high-yield topic of Neuroblastoma from the Pathology section. Follow Orthobullets on Social Media: Facebook Instagram Twitter LinkedIn YouTube --- Send in a voice message: https://podcasters.spotify.com/pod/show/orthobullets/message
Last week, we saw a few moving parts in the regulatory space, from new NCCN guidelines for pediatric neuroblastoma treatment to FDA Fast Tracks and Priority Reviews. Also last week, we covered research showing that a lower dose of an anti-emetic drug could have similar efficacy — and fewer side effects — than the standard, higher dose. NCCN Guidelines Give Framework for Childhood Neuroblastoma Treatment The National Comprehensive Cancer Network recently published guidelines for the treatment of pediatric patients with neuroblastoma. This resource is geared toward mitigating unnecessary side effects and over treatment in patients with low-risk disease, while also developing the best treatment plans for high-risk patients. CURE® spoke with Dr. Rochelle Bagatell, professor of Pediatrics and Solid Tumor Section Chief at Children's Hospital of Philadelphia, and Chair of the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) Panel for Neuroblastoma, who emphasized that while these guidelines can influence treatment strategies, conversations between patient families and clinicians and even insurance coverage, each patient's care should be as personalized as possible. “There may be specific cases where the nuances of a particular patient's case means that you have to adjust your thinking from what's written on those nice, clear lines,” Bagatell said. “But the general guidance about how to think about the risk of recurrence, what general type of therapy would be appropriate, how much chemotherapy when to do surgery. Those are the kinds of things that patients and families can look at and bring to their doctor and discuss.” FDA Fast Tracks ARV-471 for Metastatic Breast Cancer Last week the Food and Drug Administration (FDA) granted a Fast Track designation to ARV-471, a novel drug being studied for the treatment of patients with ER-positive, HER2-negative locally advanced or metastatic breast cancer. Specifically, this indication of ARV-471 is for patients who previously underwent endocrine therapy. Fast Track designations are given to drugs that show promise in treating serious conditions and fill an unmet need. The goal is to speed up the review and potential approval of these therapies. ARV-471 is being studied in the phase 3 VERITAC-2 clinical trial, which is comparing ARV-471 to Faslodex in this patient population. Preclinical studies showed that the drug induced tumor shrinkage and degradation. FDA Grants Priority Review for Alecensa in Some ALK-Positive NSCLC Also in FDA news from last week, the agency granted a priority review to Alecensa as a postsurgical treatment for patients with early-stage ALK-positive non-small cell lung cancer. The priority review is based off findings from the phase 3 ALINA trial, which showed that the drug led to a 76% reduction in the risk of disease recurrence or death compared with chemotherapy treatment. Findings from this study also showed that at two years, 93.8% of patients taking Alecensa experienced disease-free survival (which is the time after treatment when patients do not have symptoms of complications from their cancer), compared with 63% in the chemotherapy group. At three years, disease-free survival rates were 88.3% and 53.3%, respectively. With the priority review, the FDA said that they plan on making an approval decision on Alecensa on or by May 22, 2023, though those dates can always change. Lower Dose of Nausea, Vomiting Drug Controls Chemo Symptoms Finally, research showed that a lower dose of a nausea and vomiting drug could be just as effective as the higher, standard dose when it comes to controlling chemotherapy-induced nausea and vomiting. A study published in The Lancet Oncology found that a 2.5-milligram dose of olanzapine is not inferior (meaning it is no less effective) than a 10-milligram dose. Specifically, the researchers looked at the use of rescue medications, vomiting episodes and mild nausea over the course of 120 hours. Notably, this lower dose can also lead to a decrease in side effects related to the drug, such as feeling of lethargy and drowsiness. For more news on cancer updates, research and education, don't forget to subscribe to CURE®'s newsletters here.
Dr. Daniel Morgenstern grew up and was educated in England and went to the University of Cambridge as part of his medical education. In 2016 he moved to Toronto where he became a Staff Oncologist at Sick Kids Hospital in Toronto with his expertise being in the Pediatric Cancer Neuroblastoma. While working diligently on this cancer, Dr. Morgenstern is also involved in drug development in trying to find new novel therapies that will help Pediatric Cancer patients who need new medicines which are less toxic as quickly as possible.
Lysi Kinyon was diagnosed with Neuroblastoma before she was even born and Sarah Ross McHenry was diagnosed with this form of Pediatric Cancer when she was 8 years old. Lysi and Sarah will talk about the many long term side effects that both of them have had to experience for more than 20 years and how, even with all of their difficulties, they have been able to live their best lives possible, which includes giving back to others.
The FDA is certainly staying busy as 2023 comes to a close, approving three treatments for patients with cancer last week alone. Additionally, exciting study findings were released regarding a cancer vaccine for the treatment of melanoma. FDA Approves Iwilfin for High-Risk Neuroblastoma in Adults and Children The FDA approved has Iwilfin (eflornithine) for the treatment of adult and pediatric patients with high-risk neuroblastoma who have shown at least a partial response to a previous multiagent modality therapy, which includes anti-GD2 immunotherapy. Notably, the FDA reported that this drug is the first approval of a therapy used to reduce the risk of relapse in children with high-risk neuroblastoma. Neuroblastoma, as the National Cancer Institute explained on its website, is a cancer of immature nerve cells that most typically occurs in children, and often begins in the adrenal glands. The FDA said the major efficacy outcome measure behind the approval was event-free survival (EFS; time after treatment when cancer does not come back or worsen; disease progression), while other notable findings included overall survival (OS; length of time from diagnosis or start of treatment when a patient is still alive). FDA Approves Welireg for Advanced Kidney Cancer Subtype The FDA approved Welireg ((beluztifan) for patients with advanced renal cell carcinoma (RCC) who have been previously treated with a programmed death receptor-1 (PD-1) or programmed death-ligand 1 (PD-L1) inhibitor, and a vascular endothelial growth factor tyrosine kinase inhibitor (VEGF-TKI). The approval was based on findings from the LITESPARK-005 trial. Trial findings presented earlier this year at the European Society of Medical Oncology Annual Congress (ESMO) showed that at a median follow-up of 18.4 months, patients treated with Welireg experienced objective response rates (patients whose disease responded partially or completely to treatment) of 21.9%, compared with 3.5% among patients treated with Afinitor (everolimus), and 12-month progression-free survival (PFS; the time a patient lives without their disease spreading or worsening) rates were 33.7% on Welireg versus 17.6% with Afinitor, and 18-month PFS rates were 22.5% and 9%, respectively. FDA Approves Padcev-Keytruda Combo in Advanced Bladder Cancer The FDA has additionally approved Padcev (enfortumab vedotin-ejfv) plus Ketruda (pembrolizumab) for patients with locally advanced or metastatic bladder cancer. Alongside this, the FDA previously granted an accelerated approval for this patient population who are unable to be treated with cisplatin-containing chemotherapy. In the recent EV-302/KN-A39 trial, both OS and PFS showed significant improvements among the Padcev plus Keytruda group of patients, as the median overall survival for these patients was 31.5 months, while a cohort treated with chemotherapy experienced a median OS of 16.1 months. Regarding progression-free survival, the median was 12.5 months for the Padcev-Keytruda combination group and 6.3 months in the chemotherapy group. Cancer Vaccine Plus Keytruda Reduces Risk of Recurrence or Death in Melanoma Patients with advanced-stage melanoma continue to experience reduced risk of recurrence or death following treatment with a combination of mRNA vaccine mRNA-4157 (V940), an investigational individualized neoantigen therapy (INT), and Keytruda, according to recent study findings. The mRNA-4157 (V940) and Keytruda combination reduced the risk of recurrence or death by 49% and the risk of distant metastasis or death by 52% when compared with treatment with Keytruda alone in patients with stage 3 or 4 melanoma with high risk of recurrence following complete resection, as determined by the phase 2b KEYNOTE-942/mRNA-4157-P201 study, according to a news release from drug manufacturers Moderna and Merck. The latest findings, from a median planned follow-up of approximately three years, build on previously announced primarily analysis data from a median planned follow-up of approximately two years which showed that the combination reduced the risk of recurrence or death by 44% and the risk of distance metastasis or death by 65% when compared with Keytruda alone. Based on the trial's findings, the Food and Drug Administration (FDA) granted Breakthrough Therapy Designation to the combination for the post-surgical treatment of patients with high-risk melanoma earlier this year. Moderna and Merck have also announced the phase 3 INTerpath-001 (V940-001) clinical trial to evaluate the combination as an adjuvant treatment for patients with resected, high-risk stage 3B to 4 melanoma, which is currently enrolling participants, as well as a phase 3 trial for the treatment of patients with non-small cell lung cancer treated with the combination regimen. For more news on cancer updates, research and education, don't forget to subscribe to CURE®'s newsletters here.
Check out our free downloads at nascentmc.com: Implementing AMA Style – 8 Things to Get Right in Your Next Project Needs Assessments – 7 Essentials for Getting Funded Working With Your Medical Writer – 8 Ways to Get the Most out of Them See the full write ups for today's episode at nascentmc.com/podcastHere are the highlights: Belzutifan (Welireg) for RCC: - FDA approved belzutifan (Welireg) for advanced renal cell carcinoma (RCC) following prior treatments with PD-1/PD-L1 inhibitors and VEGF-TKI. Belzutifan is an HIF-2α inhibitor, the first novel therapeutic class for advanced RCC since 2015. Approval based on phase 3 LITESPARK-005 study data, granted to Merck Inc. Pulse Field Ablation (PFA) system for AFib: - FDA approved PulseSelect PFA system for atrial fibrillation (Afib) treatment. PFA uses electrical pulses to ablate cardiac tissue without thermal energy, reducing adverse events. Medtronic Inc. received approval. Roflumilast 0.3% (Zoryve) for Seborrheic Dermatitis: - FDA approved roflumilast foam 0.3% (Zoryve) for seborrheic dermatitis in individuals aged 9 and older. This is the first drug with a new mechanism of action for seborrheic dermatitis in over two decades. Approval supported by positive results from the STRATUM phase 3 trial, granted to Arcutis Biotherapeutics, Inc. Eflornithine (Iwilfin) for Neuroblastoma: - FDA approved eflornithine (Iwilfin) to reduce the risk of relapse in high-risk neuroblastoma patients. Eflornithine inhibits ornithine decarboxylase, reducing cell growth. Approval based on multi-site study results and granted to US WorldMeds, LLC. Isavuconazonium Sulfate For Pediatric Patients: - FDA approved isavuconazonium sulfate (Cresemba) for invasive aspergillosis and mucormycosis in pediatric patients. Provides an alternative to eye drops for glaucoma treatment, offering continuous delivery of travoprost. Approval based on Phase 3 trials and plans for label change, granted to Glaukos. Augmented Reality Smart Glasses Technology: - FDA approved NuLoupes augmented reality smart glasses with 3D stereoscopic imaging for dentistry and medicine. Offers live 3D stereoscopic imaging and plans to ship developer kits in 2024. Approval granted to NuEyes. OneRF Ablation System for Parkinson's: - FDA cleared the OneRF Ablation System for neurosurgical procedures in Parkinson's disease and other neurological conditions. Designed to capture electrical activity and selectively destroy brain tissue. Launch planned by NeuroOne in the first half of 2024. Pimicotinib For Tenosynovial Giant Cell Tumor: - FDA granted fast track approval to pimicotinib for the treatment of tenosynovial giant cell tumors. Demonstrated an overall response rate of 87.5% in a Phase 1b trial. Manufactured by Abbisko and commercialized in partnership with Merck. NDA for MDMA-Assisted Therapy for PTSD: - NDA submitted for MDMA in combination with psychotherapy for PTSD, aiming to be the first psychedelic-assisted therapy approved for PTSD. Submission by MAPS Public Benefit Corporation based on positive Phase 3 clinical trial results. Requested Priority Review of the NDA.
Brixton was diagnosed with Neuroblastoma when with he was 7 months old but thankfully, he's is cancer-free and is enjoying wrestling, soccer, and swimming and being an active six year old. His mom, Taryn was in the Hy-Vee studio to give us all the good updates on Brixton.
Our guests today are Jason Stoner and Stephen Rogers, who are well-known locally for their exceptional foodie and presentation skills! Jason and Stephen devise the menu, theme, and special tablescape (a blend of table and landscaping) in the weeks preceding each event; Jason captures the process with meticulous photography to heighten the sense of appreciation for each meal prepared with love. Jason is the chef and creator of the menu; Stephen is the master of planning the ambiance and theme of the evening and takes great care to select the perfect silverware, napkins, plates, drinkware, etc. The couple have hosted a Sunday Dinner at 6 p.m. once each month for the past few years that began in 2017 when they hosted a special birthday supper for their family. It was such a hit their children insisted on making the dinner a weekly celebration. Over time, the event morphed into a monthly affair that is closely followed by foodies. The waiting list of people hoping to attend speaks for itself. Thousands of people watch on social media to see what unique creation and decor these two will come up with! Only a few guests are selected each month so nabbing an invitation is a fete, to say the least! Jason and Stephen have never repeated a menu or theme. As an example, November 2023's Sunday Dinner centered on a TexMex menu, featuring beef enchiladas on homemade tortillas and sour cream sauce, with assorted sides, all freshly prepared. The evening's theme was Dia de los Muerxos, which originated in Mexico and is a days-long celebration in honor of family members who have passed away. The playlist was Tejano Classics on Spotify. The event was hosted in honor of Emmalyn Grace Quebedeaux, a young child who was recently diagnosed with Stage 4 Neuroblastoma cancer. The lucky Sunday Dinner guests won the privilege of attending via a raffle in support of Moving Mountains for Emmy, a go fund me fundraiser in support of the little one's medical treatments. For more information on how to contribute to Emmalyn Grace Quebedeaux's medical expenses, please visit https://www.gofundme.com/f/moving-mountains-for-emmy Stephen spoke lovingly of the inspiration he received from his grandmother who was his 'spirit animal,' a flamboyant and creative woman who loved design. Her inspiration was still present whenJason and Stephen's house sat under two feet of water after the 2016 flood; they realized that in rebuilding and reconstructing their home life, they wanted to use all of the beautiful things they had been keeping in the cabinets. They now utilize beautiful family china and glassware that they inherited from loved ones such as Stephen's grandmother. And as Jason says, "We eat with our eyes first, so we always try to plate the meal over the top." Jason always tries to source food items locally whenever possible, and he mentioned his love of City Girl's Farm's edible flowers, microgreens, and herbs, as well as Coastal Plains Meat Company for their outstanding selections. Jason Stoner and Stephen Rogers have a choreographed effort they employ when hosting their monthly Sunday Dinner. Stephen meets the guests, gets them a cocktail and whisks them out of the kitchen so that Jason can complete the last minute cooking. They discuss ahead of time the flow they need for the evening to be a success. The team love what they do and hope to bring the Sunday Dinner to a new level with an anticipated YouTube show that documents the monthly event from start to finish. Jason Stoner is well-known locally as being one of the principals behind Foodies of Lafayette alongside Heidi McDonald. Foodies of Lafayette spotlights area restaurants and culinary experiences in a positive way and will not allow negative feedback to destroy their aim of promoting local treasures. The site currently has over 60,400 active followers on Facebook and is growing exponentially each month.
Courtney Mount, Christian wife and mother of 9, faced her most significant challenge in 2019 when her 2-year-old daughter Millie was diagnosed with Stage 4 Neuroblastoma, an aggressive childhood cancer. After battling for a year, Millie went to heaven, and her family was left to walk their grief journey with Jesus as their guide and comforter. Courtney has now used the tragic experience to help children and families that are dealing with cancer and wrote the book, Millie Finds Her Miracle, to help children with cancer. Millie's story is helping others, and her life and legacy still continues to live on in their hearts. Courtney Mount Book, Millie's Miracle. E-mail: Milliesmiracle2020@gmail.com Personal Website: Milliesmiracle.net FB: Millie's Miracle 2020
Jason Bitzer is a New Jersey native turned Hawaii transplant who competed as a professional bodyboarder on the historic North Shore. Jason is the founder of “Never Off Duty”, a non-profit that offers underprivileged, at-risk kids a pathway to emergency services such as lifeguarding, fire sciences, EMT and other civil servant career opportunities. Now back in New Jersey, his most important mission is giving his 3.5 year-old son, James, the best care possible as he battles Stage 4 Neuroblastoma. Entrepreneurial at heart, Jason is still chasing down his dream to build a concierge-level wave pool for surfers here at the Jersey Shore, while also training East Coast lifeguards to become elite practitioners. Jason is a class act and easy to root for. Alongside Fireside America alumni Emma Lipnicky's Liv Like a Unicorn Foundation, we are committed to helping the Bitzer Family navigate this new wave along with other families in similar circumstances. Check out the links below for information on how you can get involved. ⬇️ SOCIALS AND SITES ⬇️
In this episode, we review the high-yield topic of Neuroblastoma from the Oncology section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets
On today's podcast Courtney Mount will talk about her daughter Millie who was diagnosed with Neuroblastoma when she was two years old in 2018 and passed away during Covid. Courtney will talk about Millie's treatment of chemotherapy and then immunotherapy which never really helped, and the difficult last few days before her passing. Courtney will also talk about her book Millie Finds Her Miracle, which focuses on helping children have an easier time facing death, and how we can decide to teach children healthy ways to cope with loss.
After doing both his residency and post doctorate at Dana Farber and Boston Children's Hospital and spending a number of years working in one of the best Pediatric Cancer Hospitals in the Country, Adam Durbin moved to Memphis and to another great facility in St. Jude Children's Research Hospital 2 years ago to continue his more than blossoming career in Pediatric Cancer. Focusing on Neuroblastoma, Osteosarcoma , and Rhabdomayosarcoma, Dr. Durbin will talk about his Durbin lab, and the many projects that he and his colleagues are working on to improve the lives of these kids who deserve and need so much help.
Courtney Mount joins me today as she shares the heart rendering story of their two-year Millie (their ninth child) who was diagnosed with Stage 4 Neuroblastoma, an aggressive childhood cancer.
After feeling listless , having little appetite, and experiencing arm pain, 2 year old Grant Gossling was diagnosed with Stage 4 Neuroblastoma in June of 2014. On today's podcast, Michael and June Gossling will talk about their beloved son who fought a 22 month battle against this form of Pediatric Cancer before passing away on March 28th of 2016. The Gossling's will also discuss their major focus on Pediatric Cancer advocacy, aligning themselves with the Rally Foundation and the company Oncoheroes Biosciences, as through their Grant Grace Foundation they wanted to help fund an organization that wants to have cutting edge medicines at the bedsides of these kids as quickly as humanly possible.
Terry Cechin is the Founder, President and Chief Operating Officer of the Desi Strong Foundation. Terry started this foundation in honor of his daughter Desi who passed away from Stage 4 High Risk Neuroblastoma in March of 2016 at the age of 6. Terry will be joined on the podcast by Jessica McWhirter who is the Vice President of the Foundation. This foundation focuses on providing dolls to Pediatric Cancer patients who love them for their companionship and for the therapeutic tools that they provide.
In this episode, I share the story of my daughter's cancer diagnosis - neuroblastoma. It's been a long emotional, bumpy road, but we're getting through it with the love and support of our family and friends. If you're facing a cancer diagnosis for your child, know that you are not alone.
Meet Bert's Big Adventure kid, Payton aka Pjo!In April 2019, Pjo's mom and dad feared something was wrong. His mom, Deidra, got a call from Pjo's school that he had another fever (he was having them frequently), so they took him to Children's for testing.She was in such a fog that Deidre doesn't remember the conversation in the ER that night and can only remember that he was diagnosed with a mass on his spine- Stage 4 Neuroblastoma.Neuroblastoma is a type of cancer that forms in certain types of nerve tissue. It most frequently starts from one of the adrenal glands but can also develop in the neck, chest, abdomen, or spine.Pjo immediately started an aggressive round of treatment- including port placement and biopsy, 6 months of chemo, tumor resection, radiation, 2 stem cell transplants, proton radiation, 6 months of immunotherapy (cancer-free three months in!) port removal, and then 3 months on a trial drug to hopefully help prevent relapse.Unfortunately, Pjo relapsed. From February through November of 2021, Pjo started his second full round of aggressive treatment- starting all over again. However, thankfully, he is currently in a CHOA trial maintenance therapy that seems to be going well.Pjo has significant hearing loss, his left eye gets infected easily (because of the radiation), he has asthma and kidney damage because of such rigorous treatment. From Deidra's perspective, COVID has limited access to playrooms, etc. within the hospital and things that used to make it easier/more fun to be there. She also has a lack of time to be with other parents who “get it” because of COVID and being restricted in getting together.Before the start of the pandemic, Payton received Make-A-Wish granting him a Disney Cruise vacation, first-class flights to and from Orlando for his family, and a day spent swimming with dolphins. However, his wish was pushed back several times because of COVID-19 and his immunocompromised state while he was in treatment. Eventually, Payton's family decided it made more sense to swap his wish for a camper so they could enjoy social-distanced family time.When GAMOA heard about this, they really wanted to make magic happen and grant this sweet child his original wish of flying first-class and swimming with the dolphins! Once in Disney, GAMOA is sending a limo to pick up Payton and his family to take them for a once-in-a-lifetime experience at Discovery Cove.Discovery Cove is a unique all-inclusive day resort where you and your family will experience exciting animal encounters in a breathtaking tropical atmosphere. Payton and his family will get to snorkel with thousands of tropical fish, float through a relaxing lazy river, meet curious animal ambassadors or sunbathe on white sandy beaches.The family also has an exclusive private cabana for the day- so they can enjoy their day in paradise! The VIP Cabana service includes towel service, snacks, and a mini-fridge! And the best part is, Payton will get “nose to bottlenose” with a new friend during a one-on-one dolphin encounter. The signature dolphin swim experience begins with your group meeting a dolphin in one of their crystal clearswimming areas. Next, one of the animal care specialists will teach you all about dolphin habits, behaviors, their incredible communication abilities, and the relationships they build on a daily basis with these incredible animals. After that, each group member will get a chance to individually interact with a dolphin and learn about thatdolphin's personality through behaviors.We've even arranged for a personalized buoy delivery during your signature dolphin swim and our friends at Endeavor Air have graciously saved First-Class seating for Payton and his family! See acast.com/privacy for privacy and opt-out information. Become a member at https://plus.acast.com/s/the-bert-show.
Meet Bert's Big Adventure kid, Payton aka Pjo!In April 2019, Pjo's mom and dad feared something was wrong. His mom, Deidra, got a call from Pjo's school that he had another fever (he was having them frequently), so they took him to Children's for testing.She was in such a fog that Deidre doesn't remember the conversation in the ER that night and can only remember that he was diagnosed with a mass on his spine- Stage 4 Neuroblastoma.Neuroblastoma is a type of cancer that forms in certain types of nerve tissue. It most frequently starts from one of the adrenal glands but can also develop in the neck, chest, abdomen, or spine.Pjo immediately started an aggressive round of treatment- including port placement and biopsy, 6 months of chemo, tumor resection, radiation, 2 stem cell transplants, proton radiation, 6 months of immunotherapy (cancer-free three months in!) port removal, and then 3 months on a trial drug to hopefully help prevent relapse.Unfortunately, Pjo relapsed. From February through November of 2021, Pjo started his second full round of aggressive treatment- starting all over again. However, thankfully, he is currently in a CHOA trial maintenance therapy that seems to be going well.Pjo has significant hearing loss, his left eye gets infected easily (because of the radiation), he has asthma and kidney damage because of such rigorous treatment. From Deidra's perspective, COVID has limited access to playrooms, etc. within the hospital and things that used to make it easier/more fun to be there. She also has a lack of time to be with other parents who “get it” because of COVID and being restricted in getting together.Before the start of the pandemic, Payton received Make-A-Wish granting him a Disney Cruise vacation, first-class flights to and from Orlando for his family, and a day spent swimming with dolphins. However, his wish was pushed back several times because of COVID-19 and his immunocompromised state while he was in treatment. Eventually, Payton's family decided it made more sense to swap his wish for a camper so they could enjoy social-distanced family time.When GAMOA heard about this, they really wanted to make magic happen and grant this sweet child his original wish of flying first-class and swimming with the dolphins! Once in Disney, GAMOA is sending a limo to pick up Payton and his family to take them for a once-in-a-lifetime experience at Discovery Cove.Discovery Cove is a unique all-inclusive day resort where you and your family will experience exciting animal encounters in a breathtaking tropical atmosphere. Payton and his family will get to snorkel with thousands of tropical fish, float through a relaxing lazy river, meet curious animal ambassadors or sunbathe on white sandy beaches.The family also has an exclusive private cabana for the day- so they can enjoy their day in paradise! The VIP Cabana service includes towel service, snacks, and a mini-fridge! And the best part is, Payton will get “nose to bottlenose” with a new friend during a one-on-one dolphin encounter. The signature dolphin swim experience begins with your group meeting a dolphin in one of their crystal clearswimming areas. Next, one of the animal care specialists will teach you all about dolphin habits, behaviors, their incredible communication abilities, and the relationships they build on a daily basis with these incredible animals. After that, each group member will get a chance to individually interact with a dolphin and learn about thatdolphin's personality through behaviors.We've even arranged for a personalized buoy delivery during your signature dolphin swim and our friends at Endeavor Air have graciously saved First-Class seating for Payton and his family! See acast.com/privacy for privacy and opt-out information. Become a member at https://plus.acast.com/s/the-bert-show.
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