Podcasts about education innovation

“When you think about where we were as a country before Medicare and Medicaid were created and where we are now, it's an incredible story,” says Chiquita Brooks-LaSure, who until earlier this year was the administrator for the Centers for Medicare and Medicaid Services (CMS). In a recent essay for The Century Foundation, where she is now a senior fellow, Brooks-LaSure used the 60th anniversary of enactment of those foundational insurance programs to help put their impact on individual Americans, the healthcare system and society at large in perspective. One prominent example is the desegregation of hospitals, which was achieved in part by withholding reimbursements for care unless facilities served Blacks as well as whites. Another is making it possible for more people with disabilities to live at home instead of in institutional settings. But as you'll hear in this probing Raise the Line conversation with host Lindsey Smith, Brooks-LaSure worries that many gains in coverage and other progress made over the years through Medicare, Medicaid and the Child Health Insurance Program (CHIP) are at risk because of a new federal law that calls for a trillion dollar decrease in spending, resulting in potentially millions of people losing their coverage, cuts to clinical staff and medical services, and the closure of hospitals and clinics, especially in rural areas. “Most rural hospitals in this country are incredibly dependent on both Medicare and Medicaid to keep their doors open and there's an estimate that over 300 hospitals will close as a result of this legislation, so that, I think, is a place of incredible nervousness.” Whether you are a patient, provider, policymaker or health system leader, this is a great opportunity to learn from an expert source about the range of potential impacts that will flow from changes to critically important insurance programs that provide coverage to 40% of adults and nearly 50% of children in the U.S. Mentioned in this episode:The Century FoundationEssay on 60th Anniversary of Medicare & Medicaid If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

It seems there are news stories every week about the accelerating pace of innovation in gene therapy, but only about 50 therapies have been approved so far by the US Food and Drug Administration. Our guest today, Dr. Bobby Gaspar, leads a UK-based biotech company, Orchard Therapeutics, that developed one of those treatments using gene-modified stem cells in your blood that self-renew, so a single administration can give you potentially a lifelong effect. “Our approach is about correcting those hematopoietic stem cells and allowing them to give rise to cells that can then correct the disease,” explains Dr. Gaspar.  The therapy in focus is lenmeldy, the first approved treatment for metachromatic leukodystrophy, also known as MLD, a devastating inherited disorder that affects roughly 600 children worldwide. But Dr. Gaspar is optimistic that learnings from Orchard's work on MLD could be useful in treating much more common disorders including frontotemporal dementia, Crohn's disease and others. This highly informative conversation with host Lindsey Smith also explores the importance of newborn screening, community collaboration in advancing clinical trials for rare diseases, and a future in which each gene therapy will be used as a tool for specific applications.  “There will be many gene therapies available, some of which will become the standard of care for certain diseases, but it won't be for every disease.”Mentioned in this episode:Orchard Therapeutics If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Tersia du Plessis joined Clarence Ford on News and Views to discuss her free online education initiative for unplaced Grade 8 learners, how the Western Cape school placement crisis affects families, and what she believes the Department of Education should be doing to partner with citizens offering real solutions. Views and News with Clarence Ford is the mid-morning show on CapeTalk. This 3-hour long programme shares and reflects a broad array of perspectives. It is inspirational, passionate and positive. Host Clarence Ford’s gentle curiosity and dapper demeanour leave listeners feeling motivated and empowered. Known for his love of jazz and golf, Clarrie covers a range of themes including relationships, heritage and philosophy. Popular segments include Barbs’ Wire at 9:30am (Mon-Thurs) and The Naked Scientist at 9:30 on Fridays. Thank you for listening to a podcast from Views & News with Clarence Ford Listen live on Primedia+ weekdays between 09:00 and 12:00 (SA Time) to Views and News with Clarence Ford broadcast on CapeTalk https://buff.ly/NnFM3Nk For more from the show go to https://buff.ly/erjiQj2 or find all the catch-up podcasts here https://buff.ly/BdpaXRn Subscribe to the CapeTalk Daily and Weekly Newsletters https://buff.ly/sbvVZD5 Follow us on social media: CapeTalk on Facebook: https://www.facebook.com/CapeTalk CapeTalk on TikTok: https://www.tiktok.com/@capetalk CapeTalk on Instagram: https://www.instagram.com/ CapeTalk on X: https://x.com/CapeTalk CapeTalk on YouTube: https://www.youtube.com/@CapeTalk567See omnystudio.com/listener for privacy information.

Nomfundo Brukwe joined Clarence Ford on News and Views to discuss the urgent need for better support for dyslexic learners, her work with RAVE-O, and how she’s using social media to change the way teachers approach inclusion. Views and News with Clarence Ford is the mid-morning show on CapeTalk. This 3-hour long programme shares and reflects a broad array of perspectives. It is inspirational, passionate and positive. Host Clarence Ford’s gentle curiosity and dapper demeanour leave listeners feeling motivated and empowered. Known for his love of jazz and golf, Clarrie covers a range of themes including relationships, heritage and philosophy. Popular segments include Barbs’ Wire at 9:30am (Mon-Thurs) and The Naked Scientist at 9:30 on Fridays. Thank you for listening to a podcast from Views & News with Clarence Ford Listen live on Primedia+ weekdays between 09:00 and 12:00 (SA Time) to Views and News with Clarence Ford broadcast on CapeTalk https://buff.ly/NnFM3Nk For more from the show go to https://buff.ly/erjiQj2 or find all the catch-up podcasts here https://buff.ly/BdpaXRn Subscribe to the CapeTalk Daily and Weekly Newsletters https://buff.ly/sbvVZD5 Follow us on social media: CapeTalk on Facebook: https://www.facebook.com/CapeTalk CapeTalk on TikTok: https://www.tiktok.com/@capetalk CapeTalk on Instagram: https://www.instagram.com/ CapeTalk on X: https://x.com/CapeTalk CapeTalk on YouTube: https://www.youtube.com/@CapeTalk567See omnystudio.com/listener for privacy information.

In this episode of the Getting Smart Podcast, Nate McClennen and Mason Pashia explore key topics shaping education today, from the varying start dates of schools across the U.S. to the global progress on Sustainable Development Goals (SDGs). They dive into data on teacher shortages, discussing challenges with retention and exploring innovative solutions like rethinking educator models. The conversation also touches on the neuroscience of adolescent identity formation, emphasizing the importance of creating opportunities for healthy risk-taking and personal growth in schools. Tune in to hear insights on how schools can address current challenges while fostering connection, curiosity, and purpose among learners. Outline (00:00) Introduction and Agenda (04:02) Global Goals and School Meals Progress (07:40) Public School Perception Survey Results (12:48) Teacher Shortage Data and Analysis (17:36) Rethinking Teacher Models (27:28) Identity Formation and Adolescent Development (37:23) Human Expression and Connection (42:47) What's That Song? Links Watch the full video here Read the full blog here When Do Kids Go Back to School? Exclusive Poll: As Support for Schools Plummets, Americans Resist Closing Education Department Reading for Fun: Student Experiences How an Indiana District Puts a Premium on Teacher Autonomy Overview of Teacher Shortages How Can We Keep Teachers Teaching? State of the American Teacher Survey The Teaching Model That's Keeping Educators in Schools The Great Simplification Podcast: Taylor Guthrie Sand Talk: Indigenous Thinking in a World That's Lost Its Way Mile-Long Table in Denver Seats Thousands of Strangers to Eat and Celebrate Community Introducing Kestrel and Other Songs  

You are in for a dose of inspiration in this episode of Raise the Line as we introduce you to a rare disease patient who was a leading force in establishing the diagnosis for her own condition, who played a key role in launching the first phase three clinical trials for it, and who is now coordinating research into the disease and related disorders at one of the nation's top hospitals. Rebecca Salky, RN, was first afflicted at the age of four with MOGAD, an autoimmune disorder of the central nervous system that can cause paralysis, vision loss and seizures. In this fascinating conversation with host Lindsey Smith, Rebecca describes her long and challenging journey with MOGAD, her work at the Neuroimmunology Clinic and Research Lab at Massachusetts General Hospital, and the importance of finding a MOGAD community in her early twenties. “There's a sense of power and security when you have others on your side. You're not alone in this journey of the rare disease,” she explains. Be sure to stay tuned to learn about Rebecca's work in patient advocacy, her experience as a nurse, and the three things she thinks are missing in the care of rare disease patients as our Year of the Zebra series continues.Mentioned in this episode:The MOG ProjectNeuroimmunology Clinic & Research Lab at Mass General If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

“You have to love what you do, especially in healthcare, and the earlier you find that, the better. So that's why I love to see HOSA helping young people find what it is that they want to do,” says Dr. David Kelly, a fellow in oculofacial surgery at University of California San Francisco and HOSA's board chair. You can still hear the excitement in Dr. Kelly's voice describing his earliest experiences with HOSA -- a student led organization with 300,000 plus members that prepares future health professionals to become leaders in international health – even though they happened sixteen years ago when he was a sophomore in highschool. Through hundreds of competitive events and hands-on projects, HOSA creates a framework for developing skills in communication, professionalism and leadership starting in middle school. Programs are offered throughout highschool and college as well, which Dr. Kelly took advantage of before becoming an active alumnus and joining the HOSA board as a way of giving back to an organization that has given so much to him. Since taking the reins as board chair last year, one key focus has been preparing to mark HOSA's 50th anniversary in 2026. Dr. Kelly sees the occasion as not only an opportunity to celebrate what HOSA has accomplished, but to ensure it is positioned to continue helping the healthcare industry tackle important challenges in the future. Examples include chronic workforce shortages and improving how clinicians communicate with patients and team members.  Join host Lindsey Smith on this uplifting Raise the Line episode for an optimistic look at the next generation of healthcare leaders.Mentioned in this episode:HOSAHOSA Alumni Registration If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Brennan Summers joins BankTalk to share how Stukent is improving financial literacy within the US. Through partnerships with local FI's, the simulations create exposure to real life scenarios and career paths, within schools and their communities.Send us a textPresented by Remedy ConsultingTechnology Contract Negotiation & System Assessments, T&C Improvements, and FI Strategic Planning.For more information on BankTalk:BankTalk WebsiteSubscribe to BankTalk NewsRemedy Consulting WebsiteRemedy LinkedInTo speak on the BankTalk Podcast, please email us.

What do an urban designer, an electrician and Curtin University have in common? They all want to help humanity prosper. To achieve that, sustainability is key. In this episode, our host David is joined by Professor Josh Byrne and Saf Flatters. Josh is Dean of Sustainable Futures at Curtin (he's also well-known as a presenter on ABC TV's Gardening Australia), and Saf is an electrical and energy specialist and third-year Curtin data science student. Together, they explore what a ‘sustainable future' really means, and how a novel Curtin University subject called Sustainability Challenge is bringing together academia, industry, government and community to create real solutions to some of the most pressing environmental and social problems. What does a ‘sustainable future' mean? [03:24]Sustainability problems more complex than ever [04:40]Big problems mean big solutions [07:30]Data science brings structure to complexity [08:28]Cultivating hope and optimism [10:11]Sustainability Challenge insights [12:29]There's no ‘doctor evil' industry [30:59]Learnings to last a lifetime [35:17]Learn more2025 Sustainability ChallengeSustainable FuturesFutures Platform at CurtinConnect with our guestsProfessor Josh Byrne, Dean of Sustainable Futures, Faculty of HumanitiesProfessor Josh Byrne is an environmental scientist, urban design professional and Dean of Sustainable Futures at Curtin. His career bridges academia, professional practice, media and policy, with a focus on advancing urban sustainability through demonstration and collaboration. In 2025, Josh was appointed a Member of the Order of Australia (AM) for significant service to conservation, the environment and public communication.Curtin staff profileLinkedInORCiDSaf Flatters, Bachelor of Science (Data Science) student, Faculty of Science and EngineeringSaf describes her career path as “very twisty.” With more than 15 years of experience as an electrician in the electrical and energy sectors, she's now studying a Bachelor of Science (Data Science) at Curtin. Saf is passionate about using data to solve real-world problems, and outside her studies, she runs an electrical business, serves on industry boards and spends time bike packing through hidden corners of the world.LinkedInPortfolioJoin Curtin UniversityThis podcast is brought to you by Curtin University. Curtin is a global university known for its commitment to making positive change happen through high-impact research, strong industry partnerships and practical teaching.Work with usStudy a research degreeStart postgraduate educationGot any questions, or suggestions for future topics?Email thefutureof@curtin.edu.auSocial mediaXFacebookInstagramYouTubeLinkedInTranscriptRead the transcript.Behind the scenesHost: David KarstenResearcher: Caitlin CrowleyProducer: Emilia JolakoskaFirst Nations AcknowledgementCurtin University acknowledges all First Nations of this place we call Australia and the First Nations peoples connected with our global campuses. We are committed to working in partnership with all Custodians and Owners to strengthen and embed First Nations' voices and perspectives in our decision-making, now and into the future.MusicOKAY by 13ounce Creative Commons — Attribution-ShareAlike 3.0 Unported — CC BY-SA 3.0 Music promoted by Audio Library.Curtin University supports academic freedom of speech. The views expressed in The Future Of podcast may not reflect those of Curtin University.

“We've been able to show that even by 30 days of age, we can predict with some accuracy if a child is going to have a diagnosis of autism,” says Dr. Geraldine Dawson, sharing one of the recent advancements in early diagnosis being aided by artificial intelligence.  Dr. Dawson -- a leading scholar in the field and founding director of the Duke Center for Autism and Brain Development – explains that an AI examination of a child's pattern of visits to medical specialists in its very early life is an objective diagnostic tool that can supplement the current subjective reports from parents which vary in reliability. Another objective diagnostic tool in development uses a smartphone app developed at Duke that takes video of babies watching images and applies AI-aided Computer Vision Analysis to measure for signs of autism. This enlightening Raise the Line conversation with host Lindsey Smith is loaded with the latest understandings about Autism Spectrum Disorder including advancements in early therapeutic interventions, the interplay of genetic and environmental factors, and the role of the mother's health and exposures during pregnancy. You'll learn as well about what Dawson sees as necessary societal shifts in how autism is perceived, the numerous factors contributing to a near tripling of diagnoses over the past two decades, and how early intervention and informed advocacy can make a meaningful difference in the lives of countless families.Mentioned in this episode:Duke Center for Autism and Brain Development If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

In this episode of Move the Ball, Jen Garrett is joined by Karl Fruecht, co-founder of Uncharted Learning, and Margarita Geleske, Chief Evangelist. Together, they examine how the organization’s nationally recognized INCubatoredu program transforms the high school experience by equipping students with durable, real-world skills that transcend academics. The discussion explores the program’s strategic origins, its evolution to 500 schools, and the strategic approaches that allow Uncharted Learning to scale while sustaining excellence and measurable impact. Their insights reveal how skill-building, problem solving, adaptability, and leadership development at an early age can strengthen the future workforce and inspire lasting change. Connect with Uncharted Learning: Uncharted Learning Website: https://www.unchartedlearning.org/ Uncharted Learning Instagram: https://www.instagram.com/incubatoredu_official/ Uncharted Learning LinkedIn: https://www.linkedin.com/company/uncharted-learning/ Margarita Geleske's LinkedIn: https://www.linkedin.com/in/margaritageleske/ Karl Fruecht's LinkedIn: https://www.linkedin.com/in/karlfruecht/ IT'S TIME TO SHOW UP WITH CONFIDENCE, MAKE AN IMPACT, AND MOVE THE BALL:

"Burnout and trauma are not mental illnesses. They live in your physiology. They live in your biology. They live very specifically in your nervous system,” Dr. Rola Hallam says with a conviction rooted in her own successful journey to overcome the effects of chronic stress she accumulated during many years on the frontlines of humanitarian crises in Syria and other conflict zones. Out of concern for the multitudes of health professionals who, like herself, spend years carrying the weight of their traumatic experiences without seeking help, or who pursue ineffective remedies for relieving it, Dr. Rola -- as she's known – has shifted her focus to being a trauma and burnout coach. Among her offerings is Beyond Burnout, a twelve-week program that includes multimedia content as well as live coaching and teaching about developing nervous system awareness and regulation. “Most wellness initiatives fail because they're not rewiring the nervous system to come out of survival mode and back into what is called the ventral-vagal state, which is our state of social connection and of healing and repair.” She also stresses that healing is not an individual pursuit, especially for providers who work in a relational field, and teaches about the benefits of borrowing from a colleagues' state of calm and offering them the same. Don't miss this insightful and giving conversation with host Lindsey Smith that covers Dr. Rola's wrenching experiences providing care in desperate conditions, the critically important distinction between empathy and compassion, and how empowering frontline workers to heal their trauma can uplift individuals and empower entire communities. Mentioned in this episode:Dr. Rola CoachingBeyond Burnout AssessmentCanDo - Humanitarian Aid If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

With over two decades of diverse nursing experience—from neuroscience to urgent care—Nina M. Stevenson has seen it all. As the founder of Nina Nurses and AI Nurse Consultants, she's on a mission to equip healthcare professionals with the tools, training, and confidence to thrive at every stage of their careers. In this episode, Nina shares her journey, her groundbreaking AI Nurse Consultant program, and how she's helping CNAs challenge the LVN board exam through her 54-hour pharmacology course.She also opens up about the realities of balancing the roles of nurse, mother, and wife—and why work-life balance for nurses is not a luxury, but a necessity. Whether you're starting your nursing career or looking to level up, Nina's insights on education, innovation, and self-advocacy will inspire you to take the next step.ABOUT WHEN THE MOMENT CHOOSES YOU PODCASTCoach Charlene's purpose is to bring transformation by creating and inspiring destiny moments because every heartbeat matters... When the Moment chooses you will engage in compassionate courageous conversations with some of the most daring trailblazers and change agents in organizations, corporations and the world who dared to respond to those destiny moments. Listen to new episodes bi-weekly on Sundays anywhere you get your podcasts. You will move from thinking and talking about your dreams….to manifesting the desires of your heart….Be inspired to become the highest expression of yourself. What will you do when the moment chooses you?follow me on social media: whenthemomentchoosesyouFacebook: https://www.facebook.com/whenthemomentchoosesyouInstagram: https://www.instagram.com/whenthemomentchoosesyou/Website: https://coachcharlene.com/

“Seeing that you can get through the most difficult times in life, succeed, and then also return to your community and work in service to your community was a lesson that has stuck with me,” says Dr. Uche Blackstock, the Founder and CEO of Advancing Health Equity and our guest on this inspiring episode of Raise the Line with Osmosis from Elsevier. It was a lesson the Harvard-trained physician learned from her own mother – also a Harvard trained physician – who overcame poverty, sexism and racial bias to forge an inspiring path.  In her bestselling book, Legacy: A Black Physician Reckons with Racism in Medicine, Dr. Blackstock weaves her mother's remarkable story with her own and argues for systemic change in a healthcare system riddled with racially-biased practices and policies that impact patient outcomes. As she explains to host Lindsey Smith, Advancing Health Equity's work to drive measurable and sustainable change is focused on embedding equity as a core value in the leadership, strategy, and organizational practice of health systems. “We exist to challenge inequities, empower underrepresented communities, and help build a healthcare system where everyone can thrive.” Don't miss a thought-provoking conversation with a nationally respected voice that also addresses race correction factors that impact the care of Black patients, and the work required of health institutions to build trust in effected communities.Mentioned in this episode:Advancing Health EquityLegacy: A Black Physician Reckons with Racism in Medicine If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Dr. Barron Davis, Senior Advisor at Digital Promise, returns to "The Learning Can't Wait" podcast to share his work building the Collaborative Innovation Studio—a national initiative empowering communities to co-create solutions to persistent educational challenges. He and host Hayley Spira-Bauer discuss authentic partnership, the value of centering student voice, and the power of collaboration and feedback in driving sustainable change for schools.

“Pandemics are a political choice. We will not be able to prevent every disease outbreak or epidemic but we can prevent an epidemic from becoming a pandemic,” says Dr. Joanne Liu, the former International President of Médecins Sans Frontières/Doctors Without Borders and a professor in the School of Population and Global Health at McGill University. You are in for a lot of that sort of frank and clear-eyed analysis in this episode of Raise the Line from Dr. Liu, whose perspective is rooted in decades of experience providing medical care on the frontlines of major humanitarian and health crises across the globe, as well as wrangling with world leaders to produce more effective responses to those crises and to stop attacks on medical facilities and aid workers in conflict zones. Firsthand accounts from the bedside to the halls of power are captured in her new book Ebola, Bombs and Migrants, which focuses on the most significant issues during her tenure leading MSF from 2013-2019.  The book also contains insights about the geopolitical realities that hamper this work, including lax enforcement of international humanitarian law, and a focus on national security that erodes global solidarity. Join host Lindsey Smith as she interviews this leading voice on our preparedness to meet the needs of those impacted by violent conflict, forced migration, natural disasters, disease outbreaks and other grave challenges. If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Chéla Wallace's journey from science teacher to school founder is shaped by family adversity, a passion for STEM equity, and a drive to revolutionize girls' education. Through candid reflection on her career pivots and the mentors who helped along the way, Chéla shares her plans for a new K-8 STEAM school in Greensboro focused on social justice, innovation, and empowering girls of color. Her story underscores the importance of community, high expectations, and embracing both tradition and playful curiosity to transform what is possible in education.

Real connection means understanding your audience, staying true to yourself, and creating space for others.How do you communicate who you are, what you stand for, and leave space for others to do the same? At the Stanford Seed Summit in Cape Town, South Africa, three GSB professors explored why real connection is built through authentic communication.For Jesper Sørensen, authentic organizational communication means talking about a business in ways customers or investors can understand, like using analogies to relate a new business model to one that people already know. For incoming GSB Dean Sarah Soule, authentic communication is about truth, not trends. Her research on "corporate confession" shows that companies build trust when they admit their shortcomings — but only if those admissions connect authentically to their core business. And for Christian Wheeler, authentic communication means suspending judgment of ourselves and others. “We have a tendency to rush to categorization, to assume that we understand things before we really do,” he says. “Get used to postponing judgment.”In this special live episode of Think Fast, Talk Smart, host Matt Abrahams and his panel of guests explore communication challenges for budding entrepreneurs. From the risks of comparing yourself to competitors to how your phone might undermine genuine connection, they reveal how authentic communication — whether organizational or personal — requires understanding your audience, staying true to your values, and creating space for others to be heard.Episode Reference Links:Jesper SørensenChristian WheelerSarah SouleEp.194 Live Lessons in Levity and Leadership: Me2We 2025 Part 1 Connect:Premium Signup >>>> Think Fast Talk Smart PremiumEmail Questions & Feedback >>> hello@fastersmarter.ioEpisode Transcripts >>> Think Fast Talk Smart WebsiteNewsletter Signup + English Language Learning >>> FasterSmarter.ioThink Fast Talk Smart >>> LinkedIn, Instagram, YouTubeMatt Abrahams >>> LinkedInChapters:(00:00) - Introduction (01:04) - Jesper Sørensen on Strategic Analogies (04:06) - Sarah Soule on Corporate Confessions (08:46) - Christian Wheeler on Spontaneity & Presence (12:06) - Panel Discussion: AI's Role in Research, Teaching, & Life (17:52) - Professors Share Current Projects (22:55) - Live Audience Q&A (32:53) - Conclusion *****This Episode is sponsored by Stanford. Stay Informed on Stanford's world changing research by signing up for the Stanford ReportSupport Think Fast Talk Smart by joining TFTS Premium.       

“As parents dedicated to getting a treatment for our children in their lifetimes, we have turned the rare disease drug development landscape upside down and created a new model,” says Nicole Johnson, co-founder and executive director of the FOXG1 Research Foundation.  That's not an exaggeration, as the foundation is on track to make history as it begins patient clinical trials on a gene replacement therapy next year. The former TV news producer and media executive unexpectedly entered the world of patient advocacy and drug research after her daughter, Josie, was born with FOXG1, a genetic disorder which causes severe seizures and impedes normal movement, speech, and sleep among other problems. Johnson is also making an impact in another important dimension of the rare disease space in her efforts to educate parents, teachers, and students about disability inclusion through her Joyfully Josie book series and “Live Joyfully” education programs. Tune-in to this fascinating Year of the Zebra conversation with host Lindsey Smith to find out how the foundation is aiming to bring a drug to market in less than half the time and at a fraction of the cost than the industry standard, and how this model might impact research on other rare disorders. Mentioned in this episode:FOXG1 Research FoundationJoyfully Josie Book If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Today on Raise the Line, we bring you the unlikely and inspiring story of a woman who was afraid of blood as a child but became an accomplished nurse; who struggled with learning disabilities but became an effective educator; and who, despite lacking business experience or knowledge of graphics, built a successful company that produces visually rich educational materials for nurses and other providers. “I think the theme of my life has been I have struggled with learning, and I didn't want other people to struggle,” says Jennifer Zahourek, RN, the founder and CEO of RekMed which has developed a sequential, interactive learning system that includes illustrated planners, books, and videos used by millions of students and providers. The initial focus was to provide nurses with everything they needed to know from “the basics to the bedside” but RekMed now offers content for medics, respiratory therapists, medical assistants, and veterinarians as well. Driven by her belief in the power of visual learning and her “just freakin' do it” attitude, Jennifer overcame her fear of launching a business and quickly realized just how well nursing had prepared her for the hard work and unpredictability of entrepreneurship. “Nursing teaches you how to just be resilient, to pivot, to delegate, to work on a team and to handle high stress. I think nurses could literally be some of the best entrepreneurs on the planet,” she tells host Lindsey Smith. Tune in to this lively and valuable conversation as Jennifer shares lessons from bootstrapping a publishing company, insights on the evolving landscape of healthcare education, and advice on embracing change in nursing, especially with the expanding role of AI. Mentioned in this episode:RekMed If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

“Very often, doctors try to suppress what they feel or don't even have the vocabulary to describe their emotions,” says Professor Alicja Galazka of the University of Silesia, an observation based on decades of work with physicians to enhance their emotional intelligence and resilience. Galazka, a psychotherapist, psychologist, lecturer and coach, believes this deficit is rooted in part in a lack of instruction in the internal and external psychological dimensions of being a medical provider. “There is not enough space created in medical school for teaching and training students about how to deal with their own stress and all of the skills connected to building relationships with patients,” she tells host Michael Carrese. Those same skills are also critical to working effectively as a member of a care team, which is an increasingly common arrangement in hospitals and clinics. Galazka employs simulations, dramatic role-playing, mindfulness, Acceptance and Commitment Therapy and other methods in her work with an eye on increasing the emotional agility and sensitivity of her trainees and clients. Tune in to this thoughtful episode of Raise the Line to hear Galazka's ideas on how to reshape medical training, why she is a proponent of narrative medicine, and the merits of embedding psychologists on care teams as a resource for both patients and providers. Mentioned in this episode:University of SilesiaInternational Association of Coaching Institutes If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Host Paul Spain sits down with Dr. Ian Hunter, founder of Writer's Toolbox, to explore the challenges and solutions behind the global writing gap in education. Discover how Dr. Hunter's innovative AI-powered platform is transforming the way writing is taught, why writing skills are more crucial than ever, and how technology can empower both students and teachers. If you're passionate about edtech, literacy, or future-proofing the next generation, this conversation is a great listen!Special thanks to our show partners 2degrees, One New Zealand, Spark New Zealand, HP, Workday and Gorilla Technology.

Can hands-on career training truly happen online? Skeptics argue that virtual education falls short when it comes to preparing students for high-touch, high-stakes professions—especially in healthcare.Amanda Bell, a visionary CTE leader and creator of High STEP Virtual Academy, proves otherwise. In this episode, Amanda shares how she's revolutionizing health science education for rural and under-resourced schools through virtual reality, AI simulations, and hybrid learning models. From virtual cadaver labs to soft skills AI bots, Amanda walks us through how her students are getting certified, career-ready, and more self-aware—all without ever stepping into a physical clinic.Discover how immersive technology can elevate CTE and make career exploration more equitable, accessible, and personalized. Amanda also offers practical insight into building community online, teaching empathy virtually, and using tech to strengthen—not replace—the human side of healthcare education.Episode Links:High STEP Virtual AcademySouth Central Service CooperativeCenter for Interactive Learning and Collaboration (CILC)Host Links:Discover more virtual learning opportunities and resources at CILC.org with Tami Moehring and Allyson Mitchell.Seth Fleischauer's Banyan Global Learning provides meaningful global learning experiences that prepare students across the globe for success in an interconnected world.

Listen as Dr. Elizabeth Malinzak, APSF Liaison to the OpenAnesthesia Editorial Board, is interviewed by Dr. Alli Bechtel of the APSF, our content collaborator and section affiliate. See original podcast here: https://www.apsf.org/podcast/260-openanesthesia-and-the-apsf-achieving-safe-and-quality-anesthesia-care-with-education-innovation/ Show Notes: Welcome to the next installment of the Anesthesia Patient Safety podcast hosted by Alli Bechtel.  This podcast will be an exciting journey towards improved anesthesia patient safety. Dr. Elizabeth Malinzak takes us behind the scenes of a fascinating educational initiative bridging knowledge gaps in anesthesiology. As a pediatric anesthesiologist at Duke University and liaison between the Anesthesia Patient Safety Foundation and Open Anesthesia, she's spearheaded the development of over 30 patient safety and quality improvement summaries designed for today's learners. Malinzak reflects on crucial topics like crisis resource management, fatigue mitigation, and handover protocols that weren't part of traditional training. This educational void inspired her to create accessible, concise resources that meet modern learning preferences. Gone are the days of textbook deep-dives; today's professionals need searchable, digestible content they can absorb between cases or during brief study sessions. What makes these summaries particularly valuable is their breadth and collaborative development. Each summary is peer-reviewed and often created through mentoring relationships between experienced clinicians and trainees, creating educational value beyond the finished product. Malinzak offers a clarifying perspective on how quality improvement relates to patient safety: “Patient safety is the goal… That's what we want to accomplish with every single patient. Quality improvement is the process… how we get to the goal.” As anesthesiologists face increasingly complex cases and efficiency pressures, this distinction helps practitioners develop systematic approaches to protect vulnerable patients. Looking ahead, she envisions technologies like AI reducing administrative burdens so clinicians can focus entirely on vigilant patient care. Discover these valuable resources by visiting Open Anesthesia's website and filtering for patient safety topics – you never know which summary might teach you something new today. We hope that you will check out OpenAnesthesia.org and the OA Summaries. https://www.openanesthesia.org/about-oa/ https://www.openanesthesia.org/keywords/ This episode was edited and produced by Mike Chan. Subscribe to our YouTube Channel here: https://www.youtube.com/@AnesthesiaPatientSafety Be sure to check out the APSF website at https://www.apsf.org/ Make sure that you subscribe to our newsletter at https://www.apsf.org/subscribe/ Follow us on Twitter @APSForg Questions or Comments? Email me at podcast@apsf.org. Thank you to our individual supports https://www.apsf.org/product/donation-individual/ Be a part of our first crowdfunding campaign https://www.apsf.org/product/crowdfunding-donation/ Thank you to our corporate supporters https://www.apsf.org/donate/corporate-and-community-donors/ Additional sound effects from: Zapsplat. © 2025, The Anesthesia Patient Safety Foundation

On today's program, we talk with Martha Sheridan, President of Meet Boston, about the summer tourist season ahead. Jess Aloe, digital editor for the Boston Business Journal, brings us up to speed on the top business stories of the week. Tim Murray, former lieutenant governor of the Commonwealth and current president of the Worcester Regional Chamber of Commerce talks about the need for vocational technical high schools. Mike Bower, chief operating officer for Up Education, explains how they're working with middle school students in Boston to train them for the future. And finally, Don Seiffert managing editor of the Boston Business Journal looks at the latest streaming television ratings.

"Older adults have this special clarity about who they are and what they want, which is incredibly inspiring," says Dr. Julia Hiner, explaining, in part, why she loves her work as a geriatrician in Houston, Texas. She also enjoys the challenge of the medical complexity these patients present and the opportunity it creates to see the patient as a whole person. In fact, as you'll hear in this upbeat conversation with Raise the Line host Lindsey Smith, there's almost nothing about geriatrics that Dr. Hiner does not enjoy, which explains her passion for teaching the subject at McGovern Medical School at the University of Texas Health Science Center in Houston and trying to convince more students to pursue it as their specialty.  The need is great, given that there are only 8,000 geriatricians in the US despite a rapidly growing senior population. Tune in to learn why Dr. Hiner thinks clinicians avoid the field and the steps that can be taken to improve the situation, including requiring courses in geriatrics. You'll also learn about the importance of capacity assessments, the troubling, and under-reported, problem of elder mistreatment, ageism among health professionals and much more in this super informative episode. Mentioned in this episode:University of Texas Health Science Center at Houston McGovern Medical School  If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Dr. Elizabeth Malinzak takes us behind the scenes of a fascinating educational initiative bridging knowledge gaps in anesthesiology. As a pediatric anesthesiologist at Duke University and liaison between the Anesthesia Patient Safety Foundation and Open Anesthesia, she's spearheaded the development of over 30 patient safety and quality improvement summaries designed for today's learners.Malinzak reflects on crucial topics like crisis resource management, fatigue mitigation, and handover protocols that weren't part of traditional training. This educational void inspired her to create accessible, concise resources that meet modern learning preferences. Gone are the days of textbook deep-dives; today's professionals need searchable, digestible content they can absorb between cases or during brief study sessions.What makes these summaries particularly valuable is their breadth and collaborative development. Each summary is peer-reviewed and often created through mentoring relationships between experienced clinicians and trainees, creating educational value beyond the finished product. Malinzak offers a clarifying perspective on how quality improvement relates to patient safety: "Patient safety is the goal... That's what we want to accomplish with every single patient. Quality improvement is the process... how we get to the goal." As anesthesiologists face increasingly complex cases and efficiency pressures, this distinction helps practitioners develop systematic approaches to protect vulnerable patients. Looking ahead, she envisions technologies like AI reducing administrative burdens so clinicians can focus entirely on vigilant patient care. Discover these valuable resources by visiting Open Anesthesia's website and filtering for patient safety topics – you never know which summary might teach you something new today.For show notes & transcript, visit our episode page at apsf.org: https://www.apsf.org/podcast/260-openanesthesia-and-the-apsf-achieving-safe-and-quality-anesthesia-care-with-education-innovation/© 2025, The Anesthesia Patient Safety Foundation

"It was pretty apparent to me that something was going on with him," says Kristi Levine, describing the realization that, based on her experience as a Montessori teacher, her infant son, Trey, was missing developmental milestones. Unfortunately, Kristi's hunch turned out to be correct and Trey was later diagnosed with a rare genetic mutation called CACNA1A which is impacting his motor skills, balance, coordination and speech. Kristi and her husband, Eric, join host Michael Carrese on this installment in our Year of the Zebraseries to help us understand the disorder and its implications for Trey and their family, which includes Trey's older sister Stella.  “There's a lot of guilt involved in being a parent of a child who has a disability because you never feel like you're doing enough,” shares Eric, even though they both work full time and have becoming experts at juggling work, caregiving, advocating, and volunteering with the CACNA1A Foundation. In this candid interview, Eric and Kristi discuss the challenges of parenting a child with complex medical needs, the importance of community support, the ongoing search for treatment options, and share some advice for clinicians caring for patients and families living with rare disorders. “We just want medical professionals to respect and understand what we're dealing with on a day-to-day basis and to see our kids holistically, and not just try to fix the problem medically. Understand that for us, the biggest thing that we want for our kids is just their quality of life.”Mentioned in this episode:CACNA1A Foundation If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

A few weeks ago, I had the chance to meet Wyoming Governor Mark Gordon at an energy-related event hosted by the Common Sense Institute. I was very impressed with his deep knowledge on a wide range of issues, particularly energy and education. I asked the gov if he'd be willing to join me on the show and he said "absolutely". Of course, KOA has listeners in Wyoming!Mark Gordon | WGAMark Gordon - WikipediaSome things we'll discuss: The state's own Stable Token, Energy, Education, Innovation. Nuclear Power. "Govt closest to the people is the most effective." Rare Earth Minerals.Wyoming Innovation PartnershipWyoming Stable Token Commission

We have a special guest on today's episode whose voice will be familiar to regular listeners. Last year at this time, Dr. Raven Baxter occupied the Raise the Line host chair for a special ten-part series we produced in collaboration with the Cohen Center for Recovery from Complex Chronic Illness (CoRe) at Mount Sinai in New York City, where she serves as the Director of Science Communication. The series explored the latest understandings of post-acute infection syndromes -- such as Chronic Lyme and Long COVID -- with an array of experts from the Center and other researchers and providers. In this episode, we check-in with Dr. Baxter to get an update on the work of the Cohen Center, especially with regard to its mission to educate providers. “We're building programs so that clinicians can earn credit for learning about chronic illnesses that are infection associated, and we've also developed a 200-page provider manual. I really think that we will be able to shift the narrative that currently exists,” Dr. Baxter tells host Michael Carrese. That narrative includes lingering skepticism among providers of some infection-associated illnesses, which Dr. Baxter witnessed herself as a Long COVID patient, an experience that has added meaningful perspective to her work. Dr. Baxter is also working on her own time to advance knowledge and combat misinformation through a robust social media presence as “The Science Maven” and helps other scientists and clinicians to do the same. "If we're not there to fill in that void, other people will fill it for us and the narrative may not be consistent with the truth or facts." This is a great opportunity to learn about the art and science of communications that can reach clinicians and patients alike.Mentioned in this episode:Cohen Center for Recovery from Complex Chronic IllnessThe Science Maven If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

We explore Estonia's bold leap into AI-powered education with insights from Gert Jervan, Dean of the School of Information Technologies at TalTech. Gert shares how Estonia is preparing to teach artificial intelligence in high schools and why the country's new AI-focused bachelor's program is critical for shaping future innovators. We also hear from Liis Siiroja, CEO of EdTech Estonia, who highlights the role of the private sector in driving educational innovation and explains how Estonian EdTech companies are scaling globally. Finally, Heli Aru-Chabilan, a long-time education policy expert, reflects on Estonia's decades-long journey toward digital learning - from the Tiger Leap era to today's AI Leap. She unpacks the strategic decisions, teacher training efforts, and cultural mindset that made it possible.Tune in to discover how Estonia is once again redefining the future, this time by transforming how we teach and learn in the age of AI.

On this episode of “Raise the Line” we welcome Dr. Sheldon Fields, a trailblazer in the nursing field and the president of the National Black Nurses Association. In a candid conversation, Dr. Fields shares his inspiring journey from the bedside to becoming a prominent figure in nursing, HIV/AIDS prevention and academia and also shares the challenges he faced as a Black man in a predominantly white and female field. "I fell in love with a profession that has not always loved me back," he tells host Kelsey Lafayette. Dr. Fields brings over thirty years of experience as an educator, researcher, clinician, administrator, consultant, health policy specialist, and entrepreneur to his current role at NBNA, and as the inaugural associate dean for equity and inclusion at the College of Nursing at Penn State University, where he also serves as a research professor. Listeners will find Dr. Fields' insights on navigating a career in healthcare particularly valuable, as he stresses the importance of resilience, continuing education, and mentorship. It's a compelling listen for anyone interested in the intersection of health, policy, and social justice.Mentioned in this episode:National Black Nurses Association If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

Bongani Bingwa speaks with Wendy Viljoen, Knowledge Specialist in Education at Wesgro’s Edu Invest unit for this edition of Corporates that Care, about a transformative public-private initiative making waves in South African education. Edu Invest, powered by Wesgro in collaboration with the Western Cape Education Department, focuses on expanding access to affordable independent schooling and improving educational resources and services. 702 Breakfast with Bongani Bingwa is broadcast on 702, a Johannesburg based talk radio station. Bongani makes sense of the news, interviews the key newsmakers of the day, and holds those in power to account on your behalf. The team bring you all you need to know to start your day Thank you for listening to a podcast from 702 Breakfast with Bongani Bingwa Listen live on Primedia+ weekdays from 06:00 and 09:00 (SA Time) to Breakfast with Bongani Bingwa broadcast on 702: https://buff.ly/gk3y0Kj For more from the show go to https://buff.ly/36edSLV or find all the catch-up podcasts here https://buff.ly/zEcM35T Subscribe to the 702 Daily and Weekly Newsletters https://buff.ly/v5mfetc Follow us on social media: 702 on Facebook: https://www.facebook.com/TalkRadio702 702 on TikTok: https://www.tiktok.com/@talkradio702 702 on Instagram: https://www.instagram.com/talkradio702/ 702 on X: https://x.com/Radio702 702 on YouTube: https://www.youtube.com/@radio702 See omnystudio.com/listener for privacy information.

We're honored to continue our global tour of medical education today with Professor Katarzyna Taran, MD, PhD, a pioneering interdisciplinary researcher of tumor cell biology, an award winning educator noted for her focus on student engagement, and -- in a first for a Raise the Line guest -- a shooting sports certified coach and referee. As Professor Taran explains to host Michael Carrese, these seemingly disparate professional activities require the same underlying attributes: patience, the ability to overcome barriers, openness and adaptation. She believes those last qualities are especially important for today's medical students to acquire given the accelerated pace of change in healthcare. “They need to be equipped with the ability for critical thinking, to analyze and synthesize, and to search for unconventional solutions.” Professor Taran tries to impart these skills, in addition to the medical and scientific knowledge students must know, through a high level of engagement. “Teaching is relational, so try to be familiar with students' concerns. Talk to them, listen to them and you will become someone they trust.” In this wide-ranging and engaging conversation, Professor Taran also discusses her work as the head of the Laboratory of Isotopic Fractionation in Pathological Processes in Chair of Oncology, the use of neurodidactics in teaching, and the connection between the science of pathology and the future of humans in space. Mentioned in this episode:Medical University of Lodz If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

We are pleased to share this special episode of Simon Bizcast—an AI and Business Roundtable featuring the following University of Rochester educators: Mitch Lovett  Sr Assoc Dean, Education & Innovation and Benjamin Forman Professor of Marketing, Simon Business School (moderator) Chris Kanan  Associate Professor of Computer Science, Hajim School of Engineering; Associate Professor of Brain and Cognitive Sciences, School of Arts and Sciences; Affiliate, GIDS-AI Dan Keating Clinical Assistant Professor and Faculty Director of Academic Support, Simon Business School Liza Mohr Clinical Associate Professor, Simon Business School Huaxia Rui Professor of Information Systems and Technology, Simon Business School The group shares insights on what Generative AI is doing for personal productivity, their predictions for advancements in Agentic AI, thoughts on how AI can create value for businesses, the impact AI is having on education, and more. Special thanks to the University of Rochester Office of Marketing and Communications for making this episode possible! View transcript.

Duwain Pinder, Partner at McKinsey & Company, explores some of the most pressing issues facing higher education today. He discusses innovation in the face of change, strategies for averting the demographic cliff, and why closing disparities is central to redefining ROI through the lens of equity. The conversation also connects these strategies to the sustainability challenges and pressures confronting institutions.Thank you for tuning in to this episode of the NACU podcast, where we explore innovative ideas and collaborative strategies in higher education. To learn more about NACU and our programs, visit nacu.edu. Connect with us on LinkedIn: NACU If you enjoyed this episode, don't forget to subscribe, rate, and share it with your network.

We like to think of Osmosis from Elsevier as a global community of millions of learners, connected by a desire to serve humanity and an inclination to use a diverse mix of educational resources to help them become excellent healthcare practitioners. On today's episode of Raise the Line, we're going to learn how Osmosis has created an opportunity for hundreds of those students from sixty countries to actually solidify those connections through the Osmosis Health Leadership Initiative (OHLI). Our guide to this effort is Osmosis Community Specialist Alfred Collins, who brings a keen interest in developing tech solutions to power the future of human communication to his work with OHLI.“Technology collapses barriers to communication and to understanding the nuances behind culture, behind global perspectives,” he tells host Lindsey Smith. One example he cites is how OHLI members learn about variations in the way different cultures approach collaboration, an important insight to gain as they head into team-based healthcare environments. OHLI members convene regularly over video sessions to hear from leaders in healthcare and learn about hosting successful on-campus events, among other enriching content.  They also have an opportunity to provide feedback on improving the Osmosis learning platform, and this year they're participating in a “hackathon” aimed at improving the future of healthcare. Tune in to find out more about what the OHLI program offers, how to apply, and how Alfred thinks virtual reality and AI technologies will impact the future of community building. Mentioned in this episode:Osmosis Health Leadership Initiative If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

How to address the pressing challenges facing the pension industry with technology. George Aliferis and Eve Read from Smart Pension explore the technological advancements and practical policy recommendations to improve pension outcomes. From UX, to education, communication, or "micro interventions" tune in to understand how Smart Pension is helping to achieve better retirement outcomes for all.LINKSEve Read on Linkedin: https://www.linkedin.com/in/everead/Smart Pension: https://www.smartpension.co.uk/Related episodes on Pensions: https://www.youtube.com/playlist?list=PLbJ1012cgPCAy2NXMIob3W30DXM3rF3OM

David Game remembers the days when the use of digital technology in education publishing amounted to putting a dictionary on a compact disc. Now, as the senior vice president of Product Management, Global Medical Education at Elsevier, he oversees a suite of learning materials that use artificial intelligence, virtual reality and 3-D modeling. “We've expanded into immersive technology with Apple Vision Pro that enables you to be inside the human body, to see and explore the human heart from the inside out and it is absolutely stunning,” says Game, whose long career in publishing includes experience in North America, the United Kingdom, Europe, China and India. As Game has witnessed first-hand, advancements in ed tech, including distance learning, have provided students with an array of options and modalities to choose from that accommodate different learning styles and life circumstances, and that puts a premium on being able to meet students where they are. “We want to make sure that students find learning from our materials engaging, efficient, and aligned with how they live their lives and do their work.” Join host Lindsey Smith for this fascinating episode of Raise the Line to learn how Elsevier is leveraging the innovations offered by Osmosis, Complete Anatomy and ClinicalKey Student to enrich the learning of medical students on their journey to becoming excellent clinicians.Mentioned in this Episode:Complete AnatomyClinicalKey StudentOsmosis If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

An interesting new study from the Geisinger health system in Pennsylvania examining if genomic screening in a large population increases the identification of disease risk prompted Raise the Line to re-release a previous episode about a textbook designed to help all medical providers understand the clinical applications of genomic testing. Genomics in the Clinic: A Practical Guide to Genetic Testing, Evaluation, and Counseling from Elsevier Science Direct dives into the use of this important tool in diagnosis and screening, indicating how individuals may respond to drug therapies, and more. “We really need to educate all healthcare providers about the practice of genetics because they're going to be involved directly or indirectly in genetic testing and conveying information about what the results mean to patients and their families,” explains co-author Dr. Ethylin Wang Jabs, enterprise chair of the Department of Clinical Genomics for Mayo Clinic. Jabs and her co-author, Dr. Antonie Kline, director of Clinical Genetics at the Harvey Institute for Human Genetics at Greater Baltimore Medical Center, chose a format that makes heavy use of case studies to help readers get a better grasp on this complicated field and they also include chapters on direct-to-consumer testing and the ethical and social implications in genomic medicine. “Any kind of potentially predictive testing can have ethical issues related to it, including insurance coverage, testing for family members, protections for minors, and more,” says Dr. Kline. Join host Caleb Furnas for an illuminating episode on an area of discussion in medicine that's growing in importance as the use of genetic testing rapidly increases. Mentioned in this episode: Genomics in the Clinic: A Practical Guide If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast

To mark International Rare Disease Day, we're going to introduce you to a remarkable young woman, Zainab Alani, who is not letting her challenging rare condition stand in the way of her dream of becoming a physician. After noticing Zainab's struggles with muscle weakness and fatigue at age 15, her mother – a physician – took her to doctors advocating for a diagnosis of the rare autoimmune condition generalized myasthenia gravis (MG). Unfortunately, a series of clinicians attributed her symptoms to her menstrual cycle and other errant causes and even accused Zainab of being ‘a lazy teenager.' “Despite having that support and knowledge behind me, these doctors were dismissing my symptoms because of that deceiving label of rare,” Zainab explains to host Lindsey Smith. Wanting to spare others from this frustrating diagnostic odyssey, Zainab turned to advocacy once in medical school and is working with her sister and others through the organization Rare Aware Glasgow to raise awareness among the general public about rare conditions and to spur the medical community to adjust its perspective. “We don't expect medical professionals to know every single rare disease, we just want them to acknowledge their existence and not dismiss them when a family member or a patient brings them up as a differential diagnosis.” In this inspiring episode in our Year of the Zebra podcast series you'll also learn about intersectionality creating burdens in medical diagnosis and a questionable basis for patients being denied access to new treatments.Mentioned in this episode:Rare Aware GlasgowThe Myasthenia Medic If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/raisethelinepodcast