Podcasts about their caregivers

A 2019 report showed that police violence is a leading cost of death for young Black men in the United States. About one in every 1,000 Black men can expect to be killed by the police, with the highest risk amongst all ethnic groups and genders between the ages of 20 and 35 years old. Police violence has been identified as a public health issue among public health experts as well as advocates and activists. What role, then, do doctors and pediatricians have in preparing patients and their families to be aware of this public health risk? On today's show, we're in conversation with two pediatricians who led the research of a recent peer-reviewed research letter, titled “Pediatrician Perspectives on Incorporating Discussion of Police Encounters Into Anticipatory Guidance for Black Youth and Their Caregivers“. Dr Jeffrey Eugene is a pediatrician and adolescent medicine specialist, working with the Children's Hospital of Philadelphia as well as Philadelphia FIGHT Community Health Centers. His clinical expertise is in adolescent and young adult primary care, gender affirming medical care, sexual and reproductive health, medical care for youth living with HIV, and eating disorders. Dr George Dalembert, is a pediatrician at the Children's Hospital of Philadelphia (CHOP) and an Assistant Professor of Clinical Pediatrics at the Perelman School of Medicine. Additionally, he serves on the Governance as well as Diversity, Equity, and Inclusion Committees of the Pennsylvania chapter of American Academy of Pediatrics. He is also an author on the report that we're discussing today. Read their research here: https://jamanetwork.com/journals/jamapediatrics/article-abstract/2829145 — Subscribe to this podcast: https://plinkhq.com/i/1637968343?to=page Get in touch: lawanddisorder@kpfa.org Follow us on socials @LawAndDis: https://twitter.com/LawAndDis; https://www.instagram.com/lawanddis/ The post The Public Health Risk of Police Violence and Pediatric Responsibility w/ Dr Jeffrey Eugene & Dr George Dalembert appeared first on KPFA.

Hey Heart Buddies! Wow! This week's episode is what I needed when I was facing heart surgery and I know you'll find it super helpful too.I interview Dr. Laura Suarez Pardo, a psychocardiologist from Mayo Clinic! Together, she and I explore how mental health impacts cardiac health. Dr. Suarez emphasizes the need for support programs for those with chronic heart conditions. The conversation underscores the importance of addressing psychological issues like depression and anxiety to improve cardiovascular outcomes. I share my personal journey with congenital heart disease and how nutritional changes and mental health therapy aided my recovery. The episode highlights self-compassion, the significance of a supportive healthcare team, and the transition to a "survivorship mindset."More about today's guest:Laura Suarez Pardo, MD │ Senior Associate Consultant │ Consultation-Liaison Psychiatry -- Psychocardiology│ Assistant Professor of Psychiatry │ Mayo Clinic College of MedicinePatient Support Networks♥ AHA: https://supportnetwork.heart.org/s/♥ AHA Caregiver support: https://www.heart.org/en/health-topics/caregiver-support♥ Mended Hearts: https://mendedhearts.org/connect/chapters_groups/♥ Women Heart: https://www.womenheart.org/find-support/♥ Congenital Heart Disease MN: https://www.conqueringchd.org/minnesota/♥ Adult Congenital Heart Association – Heart to Heart Peer Mentors: https://www.achaheart.org/your-heart/programs/heart-to-heart/Books♥ Facing Heart Disease: A Guide for Patients and Their Families by Theodore A Stern MD, Scott R Beach MD, JamesL Januzzi MD♥ Anger Kills: Seventeen Strategies for Controlling the Hostility That Can Harm Your Health by Redford Williams♥ ICD connection: Living with an implantable cardioverter by H. McFarland.♥ One beat at a time – Living with sudden cardiac death by M.D. Noble, M. D.♥ Russell Douglas Publishing.♥ defibrillator. A collection of patient & family stories. Ann Arbor: MPublishing.♥ Mindfulness for Beginners by Jon Kabat-Zinn.♥ Full Catastrophe Living by Jon Kabat-Zinn♥ A Mindfulness-Based Stress Reduction Workbook by Bob Stahl PhD, Elisha Goldstein PhD, Saki Santorelli EdD MA♥ Mindfulness Meditation for Pain Relief by Jon Kabat-Zinn, PhD♥ The Happiness Trap: How to Stop Struggling and Start Living Paperback by Russ Harris♥ Overcoming Depression: A Cognitive Therapy Approach by Mark Gilson and Arthur Freeman♥ Unwinding Anxiety by Judson Brewer♥ Mastery your Anxiety and Worry by David H. Barlow and Michelle G. Craske♥ The Invisible Kingdom: Reimagining Chronic Illness by Meghan O'Rourke♥ How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers by Toni Bernhard♥ Minding the Body Workbook by Jason M. Satterfield♥ Coping with Chronic Illness: A Cognitive-Behavioral Approach for Adherence and Depression by Steven Safren, Jeffrey Gonzalez,, Nafisseh Soroudi♥ Self-Compassion: The Proven Power of Being Kind to Yourself by Dr. Kristin Neff (Author)Join the Newsletter for almost weekly content for this podcast and other heart related news.Join the Patreon Community! The Joyful Beat zoom group is where you'll find connection and hope that you aren't alone in your journey.If you just want to support the show as a one-time gift (thank you), go

- Overview of Chronic Lymphocytic Leukemia (CLL) - Key Questions to Ask & Re-Ask Your Health Care Team About Adherence - The Critical Role of Caregivers in Adherence - The Importance of Adherence: Taking Your Treatment on Schedule - Discussion of Barriers to Taking Your Treatment & Pills on Schedule - Tips to Overcome These Barriers - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel, Special Occasions, and Holidays - Practical Help from Family, Partners, Caregivers & Others - The Role of the Pharmacy & Pharmacist in Reminding You About Prescription Refills - Suggestions for People Living with CLL & Their Caregivers to Cope with Taking Charge of Your Treatment Schedule - Necessary Support for the Caregivers - Questions for Our Panel of Experts

- Overview of Chronic Lymphocytic Leukemia (CLL) - Key Questions to Ask & Re-Ask Your Health Care Team About Adherence - The Critical Role of Caregivers in Adherence - The Importance of Adherence: Taking Your Treatment on Schedule - Discussion of Barriers to Taking Your Treatment & Pills on Schedule - Tips to Overcome These Barriers - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel, Special Occasions, and Holidays - Practical Help from Family, Partners, Caregivers & Others - The Role of the Pharmacy & Pharmacist in Reminding You About Prescription Refills - Suggestions for People Living with CLL & Their Caregivers to Cope with Taking Charge of Your Treatment Schedule - Necessary Support for the Caregivers - Questions for Our Panel of Experts

- Overview of Chronic Lymphocytic Leukemia (CLL) - Key Questions to Ask & Re-Ask Your Health Care Team About Adherence - The Critical Role of Caregivers in Adherence - The Importance of Adherence: Taking Your Treatment on Schedule - Discussion of Barriers to Taking Your Treatment & Pills on Schedule - Tips to Overcome These Barriers - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel, Special Occasions, and Holidays - Practical Help from Family, Partners, Caregivers & Others - The Role of the Pharmacy & Pharmacist in Reminding You About Prescription Refills - Suggestions for People Living with CLL & Their Caregivers to Cope with Taking Charge of Your Treatment Schedule - Necessary Support for the Caregivers - Questions for Our Panel of Experts

In this episode of Public Health Out Loud, Dr. Philip Chan is joined by a guest with over 40 year's experience working to change the way we care for older adults and people with dementia. In honor of Alzheimer's and Brain Awareness Month, Brown University's, Dr. Vincent Mor talks about his research,  steps we can all take to improve our brain health, and more. For more information, check out The Rhode Island Department of Health's  Guide for People Living with Dementia and Their Caregivers.

Join the Chaplaincy Innovation Lab and Kathy Fogg Berry, author of When Words Fail: Practical Ministry to People with Dementia and Their Caregivers (2018) and chaplain at Westminster Canterbury Richmond, for an introduction to spiritual care in memory care settings. We'll discuss the unique needs of older adults with dementia diagnoses, how current chaplains can begin thinking about providing this care, and how prospective chaplains might consider training and education to pursue this work. 

In my last few episodes, I've been talking about the book "How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers" by Toni Bernhard and how it has helped me navigate the physical and emotional recovery process after getting into a car accident recently.   My final episode on this book is another lesson I've been relearning this year...reframing your perspective.

The healing journey continues!  The book that has been helping me through my recovery process is called "How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers" by Toni Bernhard. As I'm reading this book, I realize that I cause myself unnecessary suffering sometimes.  I share what I learned from Bernhard's journey that helps me with stressful and overwhelming thoughts.

In this episode, I talk about my progress in the physical, and emotional, healing journey I've been on since the car accident.  I share what 'wise inaction' means based on the book I'm reading called "How to be sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers" by Toni Bernhard. I also talk about one of the best pieces of advice I've gotten so far this year!  

All Home Care Matters was privileged to welcome Mr. Ian Kremer, J.D. as guest to the show. Ian is the Executive Director of the LEAD Coalition (Leaders Engaged on Alzheimer's Disease). Ian N. Kremer, JD, has worked on federal, state and local dementia policy since 1996. Since 2012, Kremer has served as Executive Director of the LEAD Coalition (Leaders Engaged on Alzheimer's Disease: http://www.leadcoalition.org), the uniting voice of over 200 member and allied organizations. The LEAD Coalition accelerates transformational progress in care and support to enrich the quality of life of those with dementia and their caregivers, detection and diagnosis, and research leading to prevention, effective treatment, and cures. The LEAD Coalition has helped to secure historic funding increases for the National Institutes of Health (NIH), expand Medicare services for people with dementia and protect dementia-relevant components of Medicaid and the Patient Protection and Affordable Care Act, expand the role of people with dementia and their care partners in medical product development, build a nation-wide network of dementia-friendly communities, and worked with a dozen federal agencies to overcome health disparities, clarify regulatory pathways, combat elder abuse, and improve cognitive impairment detection and diagnosis, clinical care, and access to home and community-based services. Currently, Kremer serves on the Centers for Medicare and Medicaid Services (CMS) Medicare Evidence Development & Coverage Advisory Committee (MEDCAC), the Public Policy & Aging Report editorial board, and on steering and advisory committees for the National Institute on Aging (NIA) IMbedded Pragmatic AD/ADRD Clinical Trials (IMPACT) Collaboratory, the CDC-funded NYU School of Medicine BOLD Public Health Center of Excellence on Early Detection of Dementia and University of Minnesota Public Health Center of Excellence on Dementia Caregiving, the CDC National Healthy Brain Initiative Tribal Project (American Indian and Alaska Native Resource Center for Brain Health), the NIA-funded Hopkins' Economics of Alzheimer's Disease and Services (HEADS) Center and the WeCareAdvisor Study, the UCLA Dementia Care Study, the Alzheimer's Disease Patient and Caregiver Engagement (AD PACE) initiative, the Dementia Friendly America initiative, and the Davos Alzheimer's Collaborative Champions Cabinet.   Previously, Kremer served on the steering committees for the NIH's 2017 and 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers, the CDC Healthy Brain Initiative's (HBI) Leadership Committee developing the 20-18-2023 and the 2023-2027 Public Health Roadmaps, and the Food & Drug Administration (FDA) Prescription Drug User Fee Act Stakeholders Working Groups for PDUFA VI and PDUFA VII. Kremer was an external reviewer for the 2021 National Academies of Science, Engineering, and Medicine report, “Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers: A Way Forward.” Kremer also has served on steering and advisory committees for a wide variety of organizations and projects including the International Collaboration for Real-World Evidence in Alzheimer's Disease in the US (ICARE-AD-US) Study, the Gerontological Society of America Workgroup on Cognitive Impairment Detection and Earlier Diagnosis, the PCORI Dementia Research Methods project, the Brain Health Partnership, the Alzheimer's Disease Partnership for Evidence and Value (AD EVAL), and Dementia Alliance International. Kremer holds degrees from Washington University in Saint Louis and the University of Michigan School of Law. 

We believe in the power of the patient voice to provide inspiration and hope to others in similar situations. That's why we were thrilled to sit down with John Linnell, an individual who lives with COPD and who, since his diagnosis, has been advocating for COPD awareness, resources, and research.   John Linnell, COPD Patient John was diagnosed in 2005 and his journey led him to key roles in advocacy, in which he is active. John is a member of the Board of Directors for the US COPD Coalition and is an Advocacy Captain for the COPD Foundation. He serves on the Executive Board of Directors for EFFORTS (an international support group for the COPD community), a member of the Governing Board for the COPD PPRN (Patient Powered Research Network), and the Board of Directors of Right2Breathe, a nonprofit emphasizing early diagnosis and patient education. John also sat as a Consumer Reviewer for CDMRP (Congressional Directed Medical Research Programs) for the Department of Defense and now mentors new Consumer Reviewers.   John was a Co-investigator for a 3-year PCORI-funded study at Johns Hopkins: “Impact of a Peer Support Program Amongst COPD Patients and Their Caregivers”.   CMS/Medicare recently appointed John to a term as a patient representative on a Technical Expert Panel for the 2024 Impact Assessment of CMS Quality and Efficiency Measures. He also was asked to join the Patient Engagement Collaborative for the FDA. He also is a Patient Scholar for DIA (Drug Information Association) and spoke at their annual international conference this past year.   In addition, John is a frequent speaker and/or panel member at numerous national conferences dealing with both respiratory issues as well as advising digital health start-up enterprises as a Patient Advisor.

In this administrative episode we speak with this year's six recipients of oral or poster awards, awarded as part of the ASIA 2022 Annual Scientific Meeting. Each guest introduces themself and the project they were awarded for, and then gives a brief (~3 min) synopsis of the project and (~2 min) followup on future directions. The guests include: 2022 Early Career Best Poster (and overall 1st Place Poster) to Marla Petriello, D.O. for their project "DISCOVER SCI: A Multimedia Educational Resource for People with Spinal Cord Injury and Their Caregivers." 2022 Oral Presentation Award, 1st Place to Antoine Dionne, M.D., M.Sc. for their project "Is it Safe to start Activity-Based Therapy within 72h of Traumatic Spinal Cord Injury? Interim Results from the PROMPT-SCI Trial." 2022 Oral Presentation Award, 2nd Place to Kath Bogie, D.Phil. for their project "Genomic Biomarkers for Recurrent Pressure Injury Risk in Persons with Spinal Cord Injury." 2022 Oral Presentation Award, 3rd Place Matthew Davis, M.D. for their project "Do CAUTI Reduction Strategies provide a net Benefit for SCI Patients? Trends in Emergency Department Utilization, 2012-2017." 2022 Poster Presentation Award, 2nd Place to Diana Pernigotti, M.S.G. for their project "Exploring Peer Health Coach Roles in the Online Health-Management Program for Adults with Spinal Cord Injury." 2022 Poster Presentation Award, 3rd Place to Nicole Bajdek, M.S., A.C.S.M.-E.P. for their project "SCI Lynx: Development of a Physical Activity Social Network App for People with SCI." (Note: the awardees are listed in order of alphabetical order based on award name.)

Host:  Karl Steinberg MD, HMDC, CMD Guests: Philip Sloane MD, MPH; Mallory Brown, MD  Topics: Person-Centered Care, Trauma Informed Care, New Onset Seizures, and Transitions to Home Care References: Abbott et al. Applying Agile Methodology to Reengineer the Delivery of Person-Centered Care in a Nursing Home: A Case Study. Bender, et al. Concern About Past Trauma Among Nursing Home Admissions:  Report From Screening 722 Admissions Leppik et al. New Onset (Incidence) of Epilepsy and Seizures in Nursing Home Residents Toles et al. Unique Care Needs of People with Dementia and Their Caregivers during Transitions from Skilled Nursing Facilities to Home and Assisted Living Recorded: September 28, 2022 Available Credit: The American Board of Post-Acute and Long-Term Care Medicine (ABPLM) issues CMD credits for AMDA On-The-Go and affiliate podcast episodes as follows: Claim CMD Credit

Toni Bernhard is an author who has written 4 books on issues related to coping with physical and emotional pain and illness. The book we discussed today is called “How to Be Sick. A Buddhist Inspired Guide for the Chronically Ill and Their Caregivers.” Her companion guide is an amazing resource of coping tools. Toni has been living with a viral infection for 20 years and, as such, lives with pain and fatigue every day. She was previously a Law Professor at UC Davis until her life took this unexpected turn. Her books share her personal story but are also compilations of the wisdom and tools that have helped her cope with the physical and emotional challenges she continues to face. I found her to be uplifting, graceful, honest, and wise as she shared how she has navigated and accepted her life journey…for better and for worse. You'll hear how illness can be a metaphor for life and how we can all handle the mix of joys and sorrows that we inevitably face.

Cancer, chronic illness and many hardships can be devastating but you don't have to be devastated. Focusing your attitude on hope can be challenging during hard times, though studies do prove there are many healing benefits. This podcast, "Happiness through Hardship" and this mini-episode speak to how I use hope to help me heal and find a little happiness on the roller coaster ride of cancer, parenting and beyond. SHOW NOTES 3:06 - Health status - what's going on now - 8 years with stage IV cancer 6:07 - How I find hope through my medical and holistic team 7:27 - How I find hope through wellness and why it's important 12:32 - How I find hope and help through my support system 14:10 - How I find hope through stories and role models 17:58 - Asking for help 23:32 - How little things bring big joy 24:41 - How I find hope through research More cancer conversations: https://prettywellness.com/cancer-conversations/ "Happiness through Hardship - The Book and Journal for Cancer Survivors, Their Caregivers and Friends:" amzn.to/39PAjuT Crazy Sexy Kris and my favorite plant-based foods - https://amzn.to/3LKj8NG "Anti-Cancer Living:" https://amzn.to/3NTlcEX "Dirty Grandpa" movie: https://amzn.to/3DJYpa1 PLACES TO DONATE - Discussed The Cancer Couch Foundation - A 501(c)3 charity funding metastatic breast cancer research where 100% of donations and event proceeds are matched: https://www.thecancercouch.com/donations.html Breast Friends Fund - A non-profit program where funds are raised for metastatic breast cancer research: http://www.breastfriendsfund.org/ Infinite Strength - A non-profit organization offering strength and support for metastatic breast cancer single moms and their kids: https://www.infinitestrength.org/donate START - A non-profit organization providing FREE digital parenting resources: https://www.westartnow.org/about Looking for more advice - check out these mini-episodes aka cancer conversations on "Happiness through Hardship" - The Podcast: https://prettywellness.com/cancer-conversations/ or for other inspirational stories: https://prettywellness.com/podcast CONNECT with us www.PrettyWellness.com/podcast - for more information on the podcast episodes 
www.PrettyWellness.com/cancer-resources - easily accessible cancer information Our Social Media:
 www.Instagram.com/prettywellness www.Facebook.com/PrettyWellness www.Twitter.com/PrettyWellness To Buy the Book:
 Happiness through Hardship - The Book: amzn.to/39PAjuT To Donate a Book to a Cancer Center:
 PrettyWellness.com/book

These quick tips will help you self regulate with ease. Slow down enough to rewire your stress response and do something good for yourself today!Gently Touch Your LipsYour lips have parasympathetic fibers spread throughout them, so touching them activates the parasympathetic nervous system. Take one or two fingers and lightly run them over your lips.Be Mindful – Don't MultitaskTry not to multitask and be mindful of what you are doing. Toni Bernhard in her book, How To Be Sick – A Buddhist Inspired Guide for the Chronically Ill and Their Caregivers, quotes Korean Zen master Seung Sahn who liked to tell his students, “When reading, only read. When eating, only eat. When thinking, only think.”Use VisualizationUse visualization and imagery to stimulate the parasympathetic nervous system. Picture yourself in a peaceful place that you love. It could be the ocean at sunset, a mountain stream, a beautiful lush forest, a secluded beach, a field of wildflowers, or any place you enjoy and feel relaxed. Use all your senses as you visualize the place in this imagery. Hear the sounds of the waves, feel the breeze on your face, and smell the scent of the flowers. You'll feel relaxed in no time at all.Credit to: https://canyonvista.com/activating-parasympathetic-nervous-system/Check out their work by visiting the link above!

Robert and Holly chat before taking the holiday break off! We talk about our experiences being in Christmas plays (03:51), our favorite Christmas songs (10:56), reflect on the first half of Season 6 (14:18), and our hopes for the listeners over the next month (20:28). If you're curious about Holly's experience being a Super French Conductor Star (I'm serious), you'll want to give this one a listen.Things we mention in this episode/other resources:- Preorder Holly's book The Soul of the Helper here!- we talk about the first half of Season 6, including these episodes:- ep. 134 - Prayers & Liturgies for Parents (feat. Kayla Craig)- ep. 135 - The Importance of Connecting Faith & Mental Health in This Moment- ep. 136 - Motherhood & Contemplative Spirituality (feat. Shannon Evans)- ep. 137 - Love, Justice, & Memento Mori (feat. Marlena Graves)- ep. 138 - Autism, Faith, & the Gifts of Neurodiversity (feat. Daniel Bowman Jr.)- ep. 139 - Calling, Adulting, and the Changing World of Work (feat. Dr. Michaela O'Donnell)- ep. 140 - Understanding Suicidal Thoughts (feat. Dr. Kathryn Gordon)- ep. 141 - Navigating Suicidal Thoughts (feat. Dr. Kathryn Gordon)- ep. 142 - People Living With Dementia and Their Caregivers (feat. Dr. Brianna Garrison & Dr. Dennis Myers)- ep. 143 - Seeing the Sacred in Ourselves & Each Other (feat. Dr. Holly Oxhandler)Join the Cxmhunity on Facebook!Connect with Robert on his website, Twitter, Facebook, or Instagram.Connect with Holly on her website, Twitter, Facebook, or Instagram.Connect more with CXMH on Facebook, Twitter, Instagram, or Pinterest.Ways to support CXMH:- make a pledge on Patreon and get rewards like submitting questions for upcoming interviews, a mug, sticker, t-shirt, or more!- give a one-time gift using PayPal- Buy books from previous guests on Bookshop- Do your Amazon shopping through this link- Leave us a rating & review on iTunes or Google Play- Check out our CXMH merchandise to show off your support- Check out other episodes and find your favorites guests on our website.Intro/Outro music for this episode is ‘Fall Down' by Rivers & Robots.

Toni Bernhard is an author who has written 4 books on issues related to coping with physical and emotional pain and illness. The book we discussed today is called “How to Be Sick. A Buddhist Inspired Guide for the Chronically Ill and Their Caregivers.” Her companion guide is an amazing resource of coping tools. Toni has been living with a viral infection for 20 years and, as such, lives with pain and fatigue every day. She was previously a Law Professor at UC Davis until her life took this unexpected turn. Her books share her personal story but are also compilations of the wisdom and tools that have helped her cope with the physical and emotional challenges she continues to face. I found her to be uplifting, graceful, honest, and wise as she shared how she has navigated and accepted her life journey…for better and for worse. You'll hear how illness can be a metaphor for life and how we can all handle the mix of joys and sorrows that we inevitably face.

Episode 4 of our Dementia & Spirituality Series: What we do here counts – Sharing stories of spirituality and caregiving Rev. Faye Forbes and Lisa Loiselle are joined by guests Matthew Dineen and Janice Keefe, PhD to discuss the spiritual needs of the person living with dementia and their care partners. Grounded in their faith communities, Matt and Janice describe how this has provided them with the strength on the dementia journey, as care partners and as advocates.  Matt's wife Lisa was diagnosed with frontotemporal dementia at the age of 43 in 2013 and subsequently moved into long-term care. They have three children. His resolve to help shed light on the younger face of dementia has included numerous addresses such as the G7 Global Action against Dementia Legacy Event (Ottawa, 2014). He is a Team Member of Dementia Advocacy Canada (DAC) https://dementiacanada.com/. Together with his children, Matthew spoke on the impact of dementia upon adolescents at the 2016 AFTD Education Conference. Matthew is currently involved in assisting organizations with implementing guidelines for how to make Canadian places of worship more dementia-friendly and inclusive.  Janice is Professor and Chair of Family Studies and Gerontology at the Mount Saint Vincent University and is Director of the Nova Scotia Centre on Aging. Her research interests include continuing care policies and practice, family/friend caregivers and rural aging.  With her eight siblings and their families, Janice cared for her mother Genevieve. As part of her voluntary efforts, she provides workshops on caregiving and spirituality and other topics. Resources Berry, K. (2016). When Words Fail: Practical Ministry to People with Dementia and Their Caregivers. Centennial, CO: FaithHappening Publishers. Note: To view demonstration videos and to download a free Study Guide, go to:www.whenwordsfail.com An extensive bibliography is available by writing dementia.dialogue@lakeheadu.ca

Beth Cavenaugh is a certified hospice and palliative care nurse and educator with over 14 years of experience in caring for terminally ill patients. She has been a registered nurse for over 24 years and holds a bachelor's degree in nursing from Creighton University. Beth has supported hundreds of patients and their families at inpatient units, in the home setting, and behind the scenes in hospice care. Compassion, patient autonomy, and transparent communication are at the core of her care philosophy. Beth is the author of ‘Some Light at the End: An End-of-Life Guidebook for Patients and Their Caregivers'. Topics covered in this episode: • Who is Beth's book, ‘Some Light at the End' written for? • The difference between hospice and palliative care. • End of life rituals. • How to care for the caregivers. • How to craft gentleness in our language around the time of our loved one's death. • What does death look like? • Spirituality. • How to talk and educate children about death. Referenced in the episode: • Steven Pantilat, MD, who is the chair of palliative care department at the university of California, San Francisco. • The Lindsey Elmore - episode 9: Talking to your kids about sex. An interview with Emily Gaudreau. Learn more about Beth Cavenaugh at www.bethcavenaugh.com Wellness Made Simple is a new subscription platform; a one-stop-shop for everything you need to know about how to course correct or how to prevent symptoms from happening in the first place. Head over to www.wellnessmadesimple.us to sign up today. We hope you enjoyed this episode. Come check us out at www.lindseyelmore.com/podcast.

Guests Elisa Bosley and Christine Thelker discuss spiritual care for people living with dementia. Elisa speaks from the voice of a chaplain’s relationship with those living with dementia and Christine from a first-person voice regarding her own spirituality and supporting others living with dementia. The conversation focuses on how spirituality is part of every human being.  It goes beyond a particular faith expression (religion) to a sense of joy, hope, comfort, assurance, safety. Unfortunately, spiritual care is often overlooked for people with dementia who live in long-term care communities, sometimes due to a lack of knowledge, time, budget, or comfort level. Both Elisa and Christine reflect on the fact that with the right resources and training, providing engaging, interactive spiritual care for people with dementia is possible for anyone. Christine Thelker, author of "For this I am Grateful" https://www.austinmacauley.com/us/book/i-am-grateful was diagnosed at age 56 with Vascular Dementia and Cerebrovascular Disease. As a former health worker in Dementia Care and End of life care, she advocated for families and for better training for health care workers. Christine is an advocate with Dementia Alliance International https://www.dementiaallianceinternational.org and writes a blog https://chrissysjourney.com/ and has presented at national and international conferences. Elisa Bosley, Christian chaplain from Boulder Colorado is the founder of https://spiritualeldercare.com/ a free resource of original worship service agendas, Bible discussion guides, sing-along classic hymns, and more, all designed to meet the spiritual needs of older adults with Alzheimer’s and other dementias.. Other Resources Dementia-Friendly Worship: A Multifaith Handbook for Chaplains, Clergy and Faith Communities https://www.amazon.com/Dementia-Friendly-Worship-Multifaith-Chaplains-Communities/dp/1785926659 When Words Fail: Practical Ministry to People With Dementia and Their Caregivers. Kregel Publications. 2018  .  Kathy Fogg Berry Ministry with the Forgotten (2020) by Kenneth Calder    

Many years before the COVID-19 pandemic began, Toni Bernhard was thinking and writing about the isolating experiences of illness—and what it really means to be “well” in our society. After an acute viral infection led to a chronic condition, Bernhard was forced to retire from her long career as a law professor and dean of students. She learned to live within her body’s new limitations, and even wrote four books in the process. In this episode of Tricycle Talks, Tricycle’s editor-in-chief James Shaheen talks to Bernhard about her Buddhist practice, how her journey to self-acceptance and authorship began, and what advice she would give to people who are “too young to be sick,” or those who are suffering from long haul COVID-19 symptoms. Toni Bernhard is the author of the award-winning How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers, which is now available as a pocket guide. She’s also written two other books on living well with chronic illness.

In today’s episode of Help Choose Home, we’re joined by Beth Cavenaugh , a certified hospice and palliative care nurse and author of Some Light at the End , An End-of-Life Guidebook for Patients and Their Caregivers. Her book is an invitation to walk towards the powerful end of life instead of running away from it. Beth has been a hospice nurse for 15 years and a nurse for 25 in home settings, in-patient units, and hospitals. She specializes in helping demystify death for patients and their families while cultivating an appreciation for the end of life. She also has a private reiki practice which helps support physical, emotional, and spiritual healing for adults and teens. In this episode we discuss: How to work with hospice teams even when you’re not emotionally ready to accept the end. The care at home support options available for those who wish to die at home. Ways to be radically present with your loved one as they approach death, and some small rituals you can use to mark the event. Be sure to check out Help Choose Home Season 3, Episode 19 show notes and our full library of podcasts dedicated to helping families learn more about professional home care options. 

We all know how important it is for caregivers to focus on themselves. In this episode, Mar and Jenn discuss the powerful impact writing can have in the life of a caregiver. From journaling in a notebook to poetry and novels, caregivers everywhere are discovering the healing power of writing. Learn about writing prompts, which we will share in upcoming episodes and on social media. Want to dig deeper? Read Ann Lamott's Bird by Bird. Your hosts are authors, too. Though they have six books between them, they aren't done yet! Each has another book in the works! Jenn's books: Friends for Life: Strangers Brought Together by the War in Iraq, Reassurance: Treasured Christian Poems, and Amateur Apothecary Mar's books: Letters Home, Paws At Work, Thinking Through VA Benefits and Care: A Resource for Veterans with ALS and Their Caregivers and her blog: http://www.maryhahnward.com/ We'd love to read your writing on an upcoming episode. Email an excerpt to thiscaregiverlife@gmail.com. Thank you for listening! --- Send in a voice message: https://anchor.fm/thiscaregiverlife/message

On today’s episode, Emilie chats with author, speaker, and two-time breast cancer survivor, ​Caryn Sullivan, about her journey toward better health and happiness. She shares how to make positive, meaningful changes to improve your overall well being and outlook on life.Related Links:Check out the corresponding blog hereLearn more about Caryn Sullivan's work hereGrab a Copy of Caryn’s book, Happiness Through Hardship: A Guide and Journal for Cancer Patients, Their Caregivers and Friends During an Initial DiagnosisSubscribe to Caryn’s Podcast, Happiness Through HardshipEp 172: The Healing Power of NatureGrab Your 2021 LifeTracker PlannerJoin Bossed Up’s Courage Community on Facebook

I am so happy you’ve joined me for this podcast episode. I’m chatting with a remarkably inspiring guest, one whom I think you’ll love learning about and learning from. Caryn Sullivan is a two-time breast cancer survivor who spent nearly 20-years working in the world of sports and entertainment. It wasn’t until her wake-up call with stage IV cancer however, that her focus shifted from looking good to being well.   In an effort to help others embrace a lifestyle of well-being, Caryn founded Pretty Wellness where she chronicles her journey toward better health and happiness. Caryn is also the author of Happiness through Hardship and has podcast Happiness through Hardship - The Podcast where she and her guests share inspirational stories of hope.   During our chat, Caryn shared so many wonderful words of wisdom, but here are some which I found to be especially impactful: No matter your circumstances, remember that small steps can lead to significant changes in your life.  When looking for a support system, find what feels right for you and what you need. There is always a way to find some joy no matter your journey. Remember to be flexible with yourself; what you need today might be different from what you need tomorrow. Healthy living means having healthy practices that are consistently part of your life.   Want to connect with Caryn? You can do so via her book Happiness Through Hardship: A Guide and Journal for Cancer Patients, Their Caregivers and Friends During an Initial Diagnosis (https://www.amazon.com/gp/product/1982227567/ref=as_li_tl?ie=UTF8&camp=1789&creative=9325&creativeASIN=1982227567&linkCode=as2&tag=prettwelln-20&linkId=dbdb3f9e82ae9346591ebefedf08d2b6), the Happiness through Hardship podcast (https://podcasts.apple.com/us/podcast/happiness-through-hardship/id1501057346), Pretty Wellness (https://prettywellness.com/), her website (http://www.carynsullivan.com/), Instagram (https://www.instagram.com/prettywellness/), Facebook (https://www.facebook.com/prettywellness), and Twitter (https://twitter.com/prettywellness).

Behind many bald heads, sad eyes and extremely tired cancer patients are loving and thoughtful caregivers. This week’s episode my husband, Kevin, my caregiver, shares what we did right during our cancer experiences…as well as how we found fun, reduced a little stress and managed decisions with parenthood and cancer. Filled with heartfelt stories designed to light you up, Happiness Through Hardship – The Podcast provides you with inspirational stories of hope intended to bring happiness to your day while guiding you through life’s hardships. As the host and a two-time breast cancer survivor healing from stage IV disease, I want to honor October, Breast Health Awareness and Action Month by sharing some additional cancer related stories and resources. In addition to the book, "Happiness through Hardship - A Guide and Journal for Cancer Patients, Their Caregivers and Friends," there are podcast mini-episodes that provide relatable information for those touched with cancer, chronic disease and other hardships.  Please listen to this episode and if you like rate, review and subscribe. You leaving a review helps us with our podcast ranking. The higher we are ranked, the more people can discover our show….and the more inspirational content we can bring to you and others. SHOW NOTES CancerCare: https://CancerCare.org Curtain Call Podcast: https://podcasts.apple.com/us/podcast/curtain-call/id1474109848 Kevin Sullivan - NY Times Best Selling Author for "The WWE Encyclopedia of Sports & Entertainment:" https://amzn.to/3l2lZEA How we had fun with cancer: https://prettywellness.com/lipstick-and-dancing/ Which Friends Character are You QUIZ: https://www.buzzfeed.com/angelicaamartinez/friends-character-personality-quiz Mini-episode: First Few Weeks of Cancer / Early Diagnosis on HTH - The Podcast: https://apple.co/2Gd5oiu Mini-episode: What to Do, Say or Give to a Friend with Cancer on HTH - The Podcast: https://apple.co/349Zvuw CONNECT WITH US www.PrettyWellness.com/podcast - for more information on the podcast episodes 
www.PrettyWellness.com/cancer-resources - easily accessible cancer information
 www.Instagram.com/prettywellness - for daily wellness tips www.CarynSullivan.com - for more information Our social Media:
 www.Instagram.com/prettywellness www.Facebook.com/PrettyWellness www.Twitter.com/PrettyWellness To Buy the Book:
 Happiness through Hardship - The Book: amzn.to/39PAjuT To Donate a Book to a Cancer Center:
 PrettyWellness.com/book To get a free copy of our smoothies and snacks ebook: prettywellness.us9.list-manage.com/subscri…7ebed6b

As I’ve mentioned before, I never wanted to be known as Caryn with Cancer... but the reality is that’s who I am. My cancer has made me a better version of myself and for that I’m grateful. These Cancer Conversations with Caryn are going to be mini-episodes that will provide you with what worked well for me - simple suggestions that brought HOPE, RESOURCES and CONNECTIONS throughout my cancer journey. Today’s chat I will share my thoughts on what to say...or what to do...or what to give to a friend or extended family member that was just diagnosed with cancer. 3:13 Simple gestures - valuable for someone diagnosed with cancer 3:51 Pro-active ideas - appreciated by the cancer patient and/or family 4:17 Know your audience 6:07 Gifts/items - what to give friend that has been diagnosed with cancer 10:00 Gifts/services - how to help a friend diagnosed with cancer 12:01 Being proactive - ideas 15:00 What to say to a cancer patient 16:54 “Don’t give up, don’t ever give up” - Coach Jim Valvano’s famous ESPY’s speech If you want to connect, or have questions and topic ideas, please direct message us Pretty Wellness on Instagram (http://Instagram.com/PrettyWellness) If you’re looking for resources - check out the book, “Happiness through Hardship - A Guide for Cancer Survivors, Their Caregivers and Friends” on Amazon at https://amzn.to/39PAjuT Or on PrettyWellness.com/cancer-resources - there’s a page of easy to access information. Also, please take a minute to rate, review and subscribe. You leaving a review helps us with our podcast ranking. The higher we are ranked, the more people can discover our show. Tune in every Wednesday for new episodes and Fridays for mini-episodes. Other show notes links including how to contact us: http://PrettyWellness.com/podcast http://CarynSullivan.com http://Instagram.com/PrettyWellness http://Facebook.com/PrettyWellness http://Twitter.com/PrettyWellness http://CancerCare.org http://MealTrain.com http://CleaningforaReason.org http://Daily-Harvest.com, (Use PRETTYWELLNESS code at checkout for $25 off your first order) The VFoundation for Cancer Research (https://www.v.org/home) The Cancer Couch Foundation (http://TheCancerCouch.com)

In this student podcast, Andrea Michelle Hill interviews Dr. Karen Robinson  about her article, "Outcomes of a Two-Component Intervention on Behavioral Symptoms in Persons With Dementia and Symptom Response in Their Caregivers " published in volume 37 issue 5 in the Journal of Applied Gerontology. Click here to read the article.

Tis the season to be thankful, grateful, and appreciative. But how does one get to a place of gratitude if you're feeling miserable -- physically, emotionally, or both? Toni Bernhard, author of How to Be Sick (Second Edition): A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers, talks about gratitude as it relates to the Four Sublimes States of Buddhism.  A brief introduction to Robert A. Emmons', Ph.D. research on gratitude is presented on the physical, psychological, and social benefits to a gratitude practice. Emmons has written a number of books but here is a quick read for those anxious to jump into a gratitude practice, The Little Book of Gratitude: Create a life of happiness and wellbeing by giving thanks. Join Leslie with her 30-day gratitude challenge of daily journaling in the Glass Half Full Facebook group. Listen to Toni Bernhard in her earlier podcast episode and her articles on Psychology Today's website.

Our lives can take an unexpected turn at any moment. Mine did in 2001: I got sick with what the doctors initially diagnosed as an acute viral infection—but have yet to recover. I was a law professor for 22 years at the University of California—Davis until the illness forced me to retire. During those 22 years, I served six years as the law school's dean of students. I had a long-standing Buddhist practice and coled a weekly meditation group with my husband (who's also named Tony!).   I never expected to become an author but, faced with learning to live a new life, I wrote How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers. Truth be told, I began it as a manual for myself, but when I shared parts of it with others, they encouraged me to turn it into a book. And so I did. To my surprise and delight, it has garnered a worldwide following and has won two Nautilus Book Awards: a gold medal in self-help/psychology and a silver medal in memoir. It was also named one of the "Best Books of 2010" by Spirituality and Practice.         

If you've ever struggled with chronic pain, chronic illness, or know someone who does, or simply want to eliminate suffering in your life, then do we have the liberating show for you! Today I'll be talking with Toni Bernhard the award winning author of How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers and How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow. Her latest book is called How to Live Well with Chronic Pain and Illness: A Mindful Guide. But I'd argue these books aren't just for those with pain or illness, their handbooks or guides to living life free of suffering, and I think we all can learn a lot from them. Today we'll be talking about to How to Live Well with chronic illness and pain, what this means, what this looks like, how to alleviate our own suffering, feel better (at least in our minds and even use the experience for inner growth and lots and lots of self-love and compassion. That plus we'll talk about a not to do list, the tyranny of positive thinking, what to do when the blues comes calling, why Tylenol is not the answer, and why you can't have a horse when you're living in the middle of Los Angeles. Questions and Topics Include: What was Toni's life before chronic illness What is life like with a chronic illness What is Chronic Fatigue Syndrome – and what's wrong with the name Why it's as hard on her husband as it on her What was a pivotal moment in her life What the anger is that comes up when you have a chronic illness Why self-compassion is her go to practice What is mindfulness attention and caring attention How mindfulness acts as a soothing balm for the heart and the mind What the Buddha called “the second arrow” What are the 3 elements of pain? What it means to “get real” about your condition or what's going on in your life What's it mean to alleviate mental suffering What is a “not to do” list? Why you don't want to put your pre-illness life on a pedestal Why it's so important to please yourself before pleasing others Why it's so important to learn to say no (a true act of self-compassion) What's the ‘tyranny of positive thinking'? The Byron Katie “four Questions and a Turnaround” Where she finds the energy to write these books What does she want to share with people who have a chronic illness Why it's so important not to blame yourself What special vow she takes when heading out the front door Her website: tonibernhard.com and Her Turning Straw into Gold Blog: https://www.psychologytoday.com/blog/turning-straw-gold Toni Bernhard Former UC Davis Law Professor & Dean Shares How to Overcome Suffering, Chronic, Pain, and Illness Through Mindfulness, Self-Compassion & Love | Buddhism | Meditation | Lupus | Chronic Fatigue | Inspiration | Motivation | Health | Self-Help | Inspire   For More Info Visit: www.InspireNationShow.com

A trip to the grocery store. A day spent shopping for new jeans. While we may see these tasks as mundane, even tedious, these are just two things that Toni Bernhard is no longer able to do. With an illness that keeps her mostly confined to bed, Bernhard, a longtime Buddhist practitioner,shares her story by writing through the pain and exhaustion that each day brings. Her first book, How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers began as a manual for herself, but she soon realized they were words others needed to hear. The work won two Nautilus Book Awards: a gold medal in self-help/psychology and a silver medal in memoir. It was also named one of the "Best Books of 2010" by Spirituality and Practice magazine. Her second book, How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow, coincides with her increased presence on social media, and a life now spent interacting with sick individuals all over the world. Her blog  “Turning Straw Into Gold” is published on Psychology Today's website. Now her third book, How to Live Well with Chronic Pain and Illness: A Mindful Guide,offers patients and caregivers a new perspective on finding acceptance for what is and finding a path in the search for well-being.

A trip to the grocery store. A day spent shopping for new jeans. While we may see these tasks as mundane, even tedious, these are just two things the Toni Bernhard is no longer able to do. With an illness that keeps her mostly confined to bed, Bernhard, a longtime Buddhist practitioner,shares her story by writing through the pain and exhaustion that each day brings. Her first book, How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers began as a manual for herself, but she soon realized they were words others needed to hear. The work won two Nautilus Book Awards: a gold medal in self-help/psychology and a silver medal in memoir. It was also named one of the "Best Books of 2010" by Spirituality and Practice magazine. Her second book, How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow, coincides with her increased presence on social media, and a life now spent interacting with sick individuals all over the world. Her blog  “Turning Straw Into Gold” is published on Psychology Today's website. Now her third book, How to Live Well with Chronic Pain and Illness: A Mindful Guide,offers patients and caregivers a new perspective on finding acceptance for what is and finding a path in the search for well-being.

Host: Anti-Aging Psychologist Dr. Michael Brickey Guest: Rod Brouhard Broadcast and podcast on webtalkradio.net. The podcast is also on the links below (to download, right click download and select "save target as.") How do you know when to call 911 vs. when to handle the emergency yourself? Why is it best to use a land line when calling 911? How can you help EMS workers quickly size up the situation and get the most appropriate treatment? These are a few of the questions Rod Brouhard discusses in today's show and in his book, Life's Little Emergencies: A Handbook for Independent Seniors and Their Caregivers.