Podcasts about idds

In this episode of the Friends for Life Podcast, Tony Stuart dives into the modern challenges faced by professionals working in the field of intellectual and developmental disabilities (IDDs). One of the biggest hurdles is the severe shortage of qualified personnel, particularly direct support professionals (DSPs), who provide essential care and support. The conversation sheds light on how high turnover rates, low wages, and burnout are affecting the quality of care and limiting access to vital services for individuals with IDDs. Tony also highlights the gaps in training that leave many DSPs underprepared to meet the complex needs of those with IDDs. From medical care to behavioral support, there is a growing need for specialized training that is often inaccessible due to funding and geographic limitations. The episode also tackles the healthcare disparities individuals with IDDs face, and how miscommunication and a lack of specialized services can lead to ineffective or even harmful care. Finally, the discussion explores the impact of societal stigma and the ongoing challenges of integrating individuals with IDDs into communities, education, and employment. Tony emphasizes the need for continued advocacy, better funding, and increased awareness to ensure that those with IDDs are given the opportunities and dignity they deserve. Tune in to learn more about the systemic issues facing the IDD field and how professionals are working to overcome these barriers.

Welcome to this enlightening episode of the Friends for Life Podcast, where we delve into the intricate world of healthcare for adults with intellectual and developmental disabilities (IDDs). In this episode, we explore the severe, chronic nature of IDDs, which can manifest before the age of 22 and impact individuals throughout their lives. Our discussion highlights the types of IDDs, such as cerebral palsy, epilepsy, Down syndrome, and fetal alcohol syndrome, emphasizing the importance of early diagnosis and adaptive behavior in managing these conditions effectively. The conversation shifts to the significant health disparities that adults with IDDs face, including challenges in accessing care, the quality of healthcare provided, and the financial constraints due to reliance on public funding. We address how these factors contribute to poorer health outcomes and discuss systemic changes needed to improve healthcare delivery for this vulnerable population. Our experts discuss the role of family medicine in bridging these gaps through community-focused initiatives and direct care services in group homes. Rounding off the episode, we focus on the urgent need for enhanced medical education and training in handling IDDs. The gap in healthcare providers' readiness to treat individuals with IDDs calls for a restructured approach in medical education and residency programs. Join us as we advocate for a multifaceted strategy to healthcare that not only improves outcomes for adults with IDDs but also creates a more inclusive and effective healthcare system for all. Tune in to gain a deeper understanding and learn how we can all contribute to a better healthcare environment.

Eles estão reportando que houve atraso nos pagamentos de seus salários e benefícios, além de ausência nos depósitos do Fundo de Garantia do Tempo de Serviço (FGTS) por parte da IDDS. Confira os destaques nesta quinta-feira, 17/05/2024:  -  Casos de dengue ainda preocupam -  COB auxilia atletas do Rio Grande do Sul -  Copa do Mundo de futebol feminino no Brasil --- Send in a voice message: https://podcasters.spotify.com/pod/show/programabrasildefatomg/message

It would be hard to find a more amazing, local example of an exceptional partnership for change in accessibility than that of 2 Crows Brewing and the Prescrott Group! In this episode we sit down with Eric Dupont, who is the Operations Manager at 2 Crows Brewing in Halifax. 2 Crows partners with Prescott Group to hire adults with intellectual and developmental disabilities (IDDs) in their warehouse. Jenn and Andrew are clients at Prescott, and both work in the 2 Crows warehouse. They share the highlights of working at 2 Crows and their wish that more people with IDDs could be hired in the community.This podcast is made possible by Sea Change CoLab. Sea Change CoLab supports leaders and teams across private, public, and impact-driven sectors to learn sustainable ways that spark meaningful change and create learning experiences that reflect the diversity of our world and have equitable systems and inclusive cultures where everyone belongs. Go to https://seachangecolab.com/ to learn more.This podcast is hosted by Corrie Melanson, Learning Experience Designer, at Sea Change CoLab.Produced by Podstarter.Full transcript available here (https://accessibilityally.transistor.fm/s1/3/transcript)

The Department of Children Services has partnered with the Department of Intellectual and Developmental Disabilities to start a program that aims to put money in the pockets of families and guardians who are caring for children in foster care that also have intellectual disabilities. The Tennessee Strong Families Healthcare Reimbursement Account  provides up to $20,000 annually for those families. Podcast host, Jonquil Newland, sits down with Babs Tierno, the deputy director of Tennessee Strong Families with the Tennessee Department of Intellectual and Developmental Disabilities to discuss the details. Additional Resources;TN Strong Families Healthcare Reimbursement Account (HRA)Email: tn.strong.families@tn.gov  

After marrying her husband whose son Bradley has an intellectual & developmental disability (IDD), Jane heroically gave up her own job to try to help train him for one. In our broken culture where 66% of adults like Bradley are not employed, Jane's nonprofit called The H.E.A.R.T. Program has broken the mold and helped more than 1,000 adults with IDDs operate 90 vending machines, concession stands at Rockets and Texans games, and achieve their full potential. Follow Clay & Buck on YouTube: https://www.youtube.com/c/clayandbuckSee omnystudio.com/listener for privacy information.

After marrying her husband whose son Bradley has an intellectual & developmental disability (IDD), Jane heroically gave up her own job to try to help train him for one. In our broken culture where 66% of adults like Bradley are not employed, Jane's nonprofit called The H.E.A.R.T. Program has broken the mold and helped more than 1,000 adults with IDDs operate 90 vending machines, concession stands at Rockets and Texans games, and achieve their full potential. Follow Clay & Buck on YouTube: https://www.youtube.com/c/clayandbuckSee omnystudio.com/listener for privacy information.

After marrying her husband whose son Bradley has an intellectual & developmental disability (IDD), Jane heroically gave up her own job to try to help train him for one. In our broken culture where 66% of adults like Bradley are not employed, Jane's nonprofit called The H.E.A.R.T. Program has broken the mold and helped more than 1,000 adults with IDDs operate 90 vending machines, concession stands at Rockets and Texans games, and achieve their full potential. Support the show: https://www.normalfolks.us/premiumSee omnystudio.com/listener for privacy information.

After marrying her husband whose son Bradley has an intellectual & developmental disability (IDD), Jane heroically gave up her own job to try to help train him for one. In our broken culture where 66% of adults like Bradley are not employed, Jane's nonprofit called The H.E.A.R.T. Program has broken the mold and helped more than 1,000 adults with IDDs operate 90 vending machines, concession stands at Rockets and Texans games, and achieve their full potential. Support the show: https://www.normalfolks.us/premiumSee omnystudio.com/listener for privacy information.

Chris Sullens, CEO of CentralReach, offers a range of technology solutions to support providers, therapists, educators, and parents working with individuals with autism and intellectual and developmental disabilities. The goal is to streamline administrative tasks, replacing paper-based procedures with digital tools and allowing professionals to spend more in-person time with clients. The digital CR Care Coordinator helps train parents to reinforce the work of the therapists, which leads to better outcomes for the child and the behavior technician.   Chris explains, "At CentralReach, our focus is providing technology and associated services to providers, therapists, special educators, and others who are working with primarily the autistic community and those with broader intellectual and developmental disabilities (IDDs). That technology spans everything from patient-provider management systems, practice management systems, data collection on the clinical side, curriculum content assessments, as well as a host of technologies that we provide to schools and organizations that are teaching students in special education."   "We still see a lot of entire practices, frankly, that are managing schedules and managing their business, collecting data, and doing assessments that are paper-based today. There's a big shift to digitizing all aspects of a provider's business. We now have a digital assessments product, where historically, we sold books for the ABLLS and AFLS. We still sell books for those who want to use them, but the digital platform provides a lot more reporting, analytics, and trending and streamlines a lot of the process. And so, we're seeing good adoption of that." "From my standpoint, the most valuable role technology can play is supporting the behavior analyst and supporting the behavior technician. Allow them to do their job more effectively, to reduce some of the tasks that they need to do that tend to be more back office or reporting oriented, so that they can spend more time providing care to those they're working with." #CentralReach #ABA #BCBAs #Autism #IDD #DigitalHealth centralreach.com Listen to the podcast here  

Chris Sullens, CEO of CentralReach, offers a range of technology solutions to support providers, therapists, educators, and parents working with individuals with autism and intellectual and developmental disabilities. The goal is to streamline administrative tasks, replacing paper-based procedures with digital tools and allowing professionals to spend more in-person time with clients. The digital CR Care Coordinator helps train parents to reinforce the work of the therapists, which leads to better outcomes for the child and the behavior technician.   Chris explains, "At CentralReach, our focus is providing technology and associated services to providers, therapists, special educators, and others who are working with primarily the autistic community and those with broader intellectual and developmental disabilities (IDDs). That technology spans everything from patient-provider management systems, practice management systems, data collection on the clinical side, curriculum content assessments, as well as a host of technologies that we provide to schools and organizations that are teaching students in special education."   "We still see a lot of entire practices, frankly, that are managing schedules and managing their business, collecting data, and doing assessments that are paper-based today. There's a big shift to digitizing all aspects of a provider's business. We now have a digital assessments product, where historically, we sold books for the ABLLS and AFLS. We still sell books for those who want to use them, but the digital platform provides a lot more reporting, analytics, and trending and streamlines a lot of the process. And so, we're seeing good adoption of that." "From my standpoint, the most valuable role technology can play is supporting the behavior analyst and supporting the behavior technician. Allow them to do their job more effectively, to reduce some of the tasks that they need to do that tend to be more back office or reporting oriented, so that they can spend more time providing care to those they're working with." #CentralReach #ABA #BCBAs #Autism #IDD #DigitalHealth centralreach.com Download the transcript here

In this episode of the Mortgage Marketing Podcast, we uncover how Initial Disclosure Documents (IDDs) can revolutionize your mortgage broker game. These documents are more than paperwork; they're tools to enhance your presentations. Using anecdotes from my time at Connells, I realized that the essence of presentations mattered more than the slides themselves. There are two types of people when it comes to IDDs: meticulous readers and those who overlook them. I belong to a different category. IDD is my secret weapon, acting as a framework for engaging presentations. In just 15 minutes, I incorporate the IDD into conversations, highlighting services like insurance, fees, and regulation. I address objections by discussing reasons clients might hesitate on insurance, building transparency and tailored solutions. Use the IDD as a canvas to showcase yourself and build trust through transparency, not compliance. Engage clients by annotating the IDD during interactions, giving them a copy for reference. IDD isn't just paperwork; it's a presentation glue covering introductions, fees, complaints, and the authority to proceed. Ready to level up your mortgage interactions? Embrace the power of IDDs for impactful presentations. If you found this episode helpful, hit subscribe! Our next episode explores structuring perfect initial discovery calls. Thanks for tuning in to the Mortgage Marketing Podcast!Listen to the Mortgage Marketing Mastery solo showSpotifyapple Youtube Book a free discovery call here https://calendly.com/ashborland/discoverycall If you are NEW HERE check out the following Playlist - Marketing Foundations For Mortgage BrokersCheck Out My Solo Podcast

De tweede dag van de Provada op New Business Radio vanuit de RAI Amsterdam gemist? De dag ging van start met het ‘Vastgoedmarkt Ontbijtnieuws', gepresenteerd door Servaas van der Laan. Ron Lemmens en Fabienne de Vries spraken met verschillende ondernemers en luisteraars werden bijgepraat over de laatste ontwikkelingen en innovaties in de vastgoedwereld. Het thema van dag twee was Klimaatadaptief en Paris Proof. Te gast in de uitzending waren Stephan de Bie van Vesteda, Hanne Tersmette van de Vogelbescherming, Babette van der Veen van Gouderdom, Britt van der Zandt van VORM, Ingeborg de Jong van Timpaan, Werner Schouten van Werner in gesprek, Erik Faber van Fakton, Miriam Hoekstra van Woonstad Rotterdam, Bram Kroon van IDDS, Dennis Ostendorf van Milieu Service Nederland, Dennis Zweers en Werner Scholten van Folie Effect, Edwin Dalenoord van Bennex, Shirley Kreuger en Robert Tersmette van Onze Joost, Sophie Kraaijeveld van ING, Maarten Strijdonk van BAM Wonen, Menso Oosting van Fijn Wonen, Boy van Zelst en Wouter Endert van Lidl Nederland, Wouter van den Wildenberg en Benny Roelse van Fakton. Dit alles hoorde je tijdens een speciale uitzending met Fabienne de Vries en Ron Lemmens vanuit de RAI in Amsterdam. Jaarlijks bezoeken meer dan 24.000 vastgoedprofessionals PROVADA voor kennis, inspiratie en de vele netwerkgelegenheden.

De tweede dag van de Provada op New Business Radio vanuit de RAI Amsterdam gemist? De dag ging van start met het ‘Vastgoedmarkt Ontbijtnieuws', gepresenteerd door Servaas van der Laan. Ron Lemmens en Fabienne de Vries spraken met verschillende ondernemers en luisteraars werden bijgepraat over de laatste ontwikkelingen en innovaties in de vastgoedwereld. Het thema van dag twee was Klimaatadaptief en Paris Proof. Te gast in de uitzending waren Stephan de Bie van Vesteda, Hanne Tersmette van de Vogelbescherming, Babette van der Veen van Gouderdom, Britt van der Zandt van VORM, Ingeborg de Jong van Timpaan, Werner Schouten van Werner in gesprek, Erik Faber van Fakton, Miriam Hoekstra van Woonstad Rotterdam, Bram Kroon van IDDS, Dennis Ostendorf van Milieu Service Nederland, Dennis Zweers en Werner Scholten van Folie Effect, Edwin Dalenoord van Bennex, Shirley Kreuger en Robert Tersmette van Onze Joost, Sophie Kraaijeveld van ING, Maarten Strijdonk van BAM Wonen, Menso Oosting van Fijn Wonen, Boy van Zelst en Wouter Endert van Lidl Nederland, Wouter van den Wildenberg en Benny Roelse van Fakton. Dit alles hoorde je tijdens een speciale uitzending met Fabienne de Vries en Ron Lemmens vanuit de RAI in Amsterdam. Jaarlijks bezoeken meer dan 24.000 vastgoedprofessionals PROVADA voor kennis, inspiratie en de vele netwerkgelegenheden.

De tweede dag van de Provada op New Business Radio vanuit de RAI Amsterdam gemist? De dag ging van start met het ‘Vastgoedmarkt Ontbijtnieuws', gepresenteerd door Servaas van der Laan. Ron Lemmens en Fabienne de Vries spraken met verschillende ondernemers en luisteraars werden bijgepraat over de laatste ontwikkelingen en innovaties in de vastgoedwereld. Het thema van dag twee was Klimaatadaptief en Paris Proof. Te gast in de uitzending waren Stephan de Bie van Vesteda, Hanne Tersmette van de Vogelbescherming, Babette van der Veen van Gouderdom, Britt van der Zandt van VORM, Ingeborg de Jong van Timpaan, Werner Schouten van Werner in gesprek, Erik Faber van Fakton, Miriam Hoekstra van Woonstad Rotterdam, Bram Kroon van IDDS, Dennis Ostendorf van Milieu Service Nederland, Dennis Zweers en Werner Scholten van Folie Effect, Edwin Dalenoord van Bennex, Shirley Kreuger en Robert Tersmette van Onze Joost, Sophie Kraaijeveld van ING, Maarten Strijdonk van BAM Wonen, Menso Oosting van Fijn Wonen, Boy van Zelst en Wouter Endert van Lidl Nederland, Wouter van den Wildenberg en Benny Roelse van Fakton. Dit alles hoorde je tijdens een speciale uitzending met Fabienne de Vries en Ron Lemmens vanuit de RAI in Amsterdam. Jaarlijks bezoeken meer dan 24.000 vastgoedprofessionals PROVADA voor kennis, inspiratie en de vele netwerkgelegenheden.

De tweede dag van de Provada op New Business Radio vanuit de RAI Amsterdam gemist? De dag ging van start met het ‘Vastgoedmarkt Ontbijtnieuws', gepresenteerd door Servaas van der Laan. Ron Lemmens en Fabienne de Vries spraken met verschillende ondernemers en luisteraars werden bijgepraat over de laatste ontwikkelingen en innovaties in de vastgoedwereld. Het thema van dag twee was Klimaatadaptief en Paris Proof. Te gast in de uitzending waren Stephan de Bie van Vesteda, Hanne Tersmette van de Vogelbescherming, Babette van der Veen van Gouderdom, Britt van der Zandt van VORM, Ingeborg de Jong van Timpaan, Werner Schouten van Werner in gesprek, Erik Faber van Fakton, Miriam Hoekstra van Woonstad Rotterdam, Bram Kroon van IDDS, Dennis Ostendorf van Milieu Service Nederland, Dennis Zweers en Werner Scholten van Folie Effect, Edwin Dalenoord van Bennex, Shirley Kreuger en Robert Tersmette van Onze Joost, Sophie Kraaijeveld van ING, Maarten Strijdonk van BAM Wonen, Menso Oosting van Fijn Wonen, Boy van Zelst en Wouter Endert van Lidl Nederland, Wouter van den Wildenberg en Benny Roelse van Fakton. Dit alles hoorde je tijdens een speciale uitzending met Fabienne de Vries en Ron Lemmens vanuit de RAI in Amsterdam. Jaarlijks bezoeken meer dan 24.000 vastgoedprofessionals PROVADA voor kennis, inspiratie en de vele netwerkgelegenheden.

Remote patient monitoring often deals with averting crises: for instance, the familiar fall alert devices you see advertised on TV. Many people with autism, Down syndrome, cerebral palsy, or other conditions that involve intellectual and developmental disabilities (IDDs) can end up in crisis because their stress goes unnoticed until they are no longer able to cope. A platform from Awake Labs can help people with cognitive disabilities monitor and manage stress. Learn more about Awake Labs: https://www.awakelabs.com/ Find more great health IT content: https://www.healthcareittoday.com/

Adults with intellectual and developmental disabilities face an uncertain future when they graduate from high school. How can families and individuals navigate the next steps? Experts and adults with IDDs weigh in. Materials contained within this podcast are copyrighted property of The Ohio State University.   Link to transcript

CentralReach - Our mission is to provide the leading software and services platform to help children and adults diagnosed with autism and related IDDs - and those who serve them - unlock potential, achieve better outcomes, and live more independent lives. Chris Sullens is the Chief Executive Officer of CentralReach and is leading the company in its mission to provide an end-to-end platform of software and services that enable Applied Behavior Analysis (ABA) clinicians and educators to produce superior client outcomes for people with autism and related disorders. Chris Sullens brings decades of experience to the company and has a proven track record of building strong company cultures and taking customer-centric technology companies, like CentralReach, to the next level. Since he joined, CentralReach has won 20+ awards including Deloitte Technology Fast 500, NJBIZ Fast 50, Silver Stevie for Most Innovative Company of the Year, NJBIZ Best Places to Work, and Best in Biz Company of the Year - demonstrating the positive effects of the investments the company is making in its people, process, systems and client satisfaction initiatives. Joanne Hill Powell,Ph.D., BCBA-D - LiftEd by CentralReach, Director of Special Education Strategy & Business Development LiftEd equips classroom educators, school-based clinicians, administrators and parents with evidence-based data collection, instructional planning, progress reporting, and family engagement cloud software tools that help students with learning disabilities achieve success in the classroom, and in life. Website https://centralreach.com/ (www.centralreach.com) Social Media Information www.linkedin.com/company/centralreach/ Show Sponsor The National Association for Primary Education speaks for young children and all who live and work with them. Get a FREE e-copy of their professional journal at https://nape.org.uk/journal (nape.org.uk/journal) 

The study sought to understand the experiences of children with IDDs in learning in inclusive schools in Accra, Ghana.

I'm so excited that my very Cool Friend Lanie Labens is joining me for this episode! Lanie is the Celebrity Talent Coordinator for ReedPOP (New York Comic Con, C2E2, Star Wars Celebration), the CEO of IDDS management, a published author, and a self-described Doll Girl, and she found time to talk with me, which is a huge honor. Not only do we talk about all of that, but we discuss our unorthodox friendship genesis in Albuquerque, awkward celebrity interactions, her adorable new kitten, and much more! Like, SO much more. Please enjoy and then follow Lanie at @lanielabens on Instagram!

Mental health clinicians are often reluctant to treat people who have intellectual and developmental differences (IDDs) for fear of doing something that could worsen rather than improve the client's condition. In this episode  of Justice in Action, two JRI clinicians, Dr. Jacquelyn Kraps, Metrowest Area Director and Clinical Director of Outpatient Services, and Bailey McCombs, Licensed Metal Health Counselor and Expressive Arts Therapist, talk about the rewards and challenges of working with children with a range of differences, from autism spectrum disorder to chromosomal differences, cognitive challenges, and traumatic brain injury. Dr. Kraps and McCombs have helped establish the Developmental Differences Specialty Team to assist other JRI therapists to work effectively with clients with both IDDs and mental health needs, including complex trauma. Services for those individuals have long been siloed because they have been seen as separate and distinct. JRI is breaking new ground by having a single provider address the entirety of the client's service needs. Treating clients with both complex trauma and IDDs draw heavily on a therapist's creativity, flexibility, and powers of observation, Dr. Kraps and McComb say. Sometimes it requires teasing out which problems are caused by trauma and which are part of the individual's developmental difference. They advise other clinicians to be curious, open, and willing to say the wrong thing. If an approach doesn't work, they can always shift course.  Sometimes a client — especially a non-verbal client — can communicate most successfully by writing, drawing, or moving their body. Individuals with IDDs deserve effective treatment for mental health needs, which they are at least as likely to experience as the rest of the community, and they can enjoy positive, healthier outcomes with the right therapeutic approach. For more information, visit jri.org. A note about language: IDD often stands for intellectual and development disabilities. JRI choses to use the word differences instead of disabilities to be as inclusive as possible, and honors that each individual and family get to decide how they identify.

Severe iodine deficiency disorders (IDDs) caused by lack of iodine during pregnancy and early life can result in irreversible brain damage but are avoidable. Professor Creswell Eastman at the University of Sydney in Australia and his colleagues Professors Mu Li and Gary Ma have contributed significantly to the prevention of IDDs arising from severe iodine deficiency in the developing world and is now concentrating on the effects of mild to moderate iodine deficiency globally.

Licensed professional counselors Johanna Dwinells and Sarah Bryski-Hamrick are slowly demystifying and destigmatizing therapy, one episode at a time. Recording and living in the Philadelphia area, Johanna and Sarah work to make therapy feel more accessible, with quirky, sometimes intrusive questions that reveal the human side of healthcare professionals, all while they overcome their own anxieties and internalized stigmas. TW: Abuse of the disabled, including forced sterilizations, institutionalization, humiliation.Episode summary: Johanna and Sarah discuss high school track and field before diving into the history of healthcare for the intellectually and developmentally disabled, which can be described as both horrendous and unpredictable. They interview recent Temple University grad and long time friend of Sarah's, Raquel M. Mangual. Hear all about the challenges of guardianship for Raquel's brother with IDD, the shortcomings of healthcare and support for folx with IDDs, as well as the complications of drug and alcohol recovery for Latinx and other BIPOC communities and the necessity of breaking apart from white spaces to heal further. Guest Bio: Raquel M. Mangual is a BWS and recent graduate of Temple University's School of Social Work, with a focus on the disabled community, specifically adults with intellectual and developmental disabilities. She has done extensive research on the experience of Latinx disabled folx, examining the many intersectionalities. She has personal and professional experience working with this population as she cared for her older brother who lives with IDD and supported him after their parents died when she was 20. She spent a short period of time working in behavioral health but realized that wasn't where her spirit was. She's in long term recovery from drugs and alcohol which has had a huge impact on her educational journey and in her spare time, she is an artist.Sources for today's History Lesson: “Healthcare for Persons with Intellectual and Developmental Disability in the Community” by David A. Ervin, Brian Hennen, Joav Merrick, and Mohammed Morad; National Park Service - series on disability; Brief History and Future of Intellectual Disability Services in America - Scott Spreat; The National Council on DisabilityResources: Mental Health Delegate Hotline: 215-685-64407 days/wk, 24 hrs/dayMobile crisis, involuntary commitmentSuicide Crisis and Intervention Hotline: 215-686-4420Open 24/7Community Behavioral Health Warmline (non-urgent): 855-507-9276Mon-Fri 4pm-7pmNAMI Philly Warmline: 267-687-4381Questions/comments/concerns? Want to share your thera-story? Email us at therapistsnextdoor@gmail.com.Follow us: IG: @therapistsnextdoorTwitter: @therapistsndpodDo you want bonus features, including episodes, the ability to vote on what questions we ask our guests and ad-free episodes (fingers crossed)? Do you want to help support us as we demystify and destigmatize mental health? Visit our Patreon: patreon.com/tndpodcastOr visit our website: tndpodcast.com

#053 - Over 75% of adults with developmental disabilities live at home with family. There is a growing population of aging caregivers of adults with developmental disabilities, in part due to increased lifespan and extensive waiting lists for residential services (The Arc Autism Now).  In honor of World Autism Day on 4/2/21, today's podcast episode focuses on older adults who are caring for adult children with autism or other Intellectual or Developmental Disabilities (IDDs).In this interview, Lois Shingler, an attorney and co-founder of Peter and Paul’s Place shares her experience of being 70 years old while caring for Paul, her 45 year old son with Autism. She also provides several tips for other aging parents caring for their adult children with IDDs. Here's a peek inside the episode: [10:45] Lois describes her experience of entering older adulthood while caring for Paul, her 45 year old son with Autism[17:53] Learn what you need to plan for if you're an older adult caring for an adult with special needs, from transportation, to housing, to finances, to who will assist your loved one. [28:00] A man on his deathbed who feared for his son who was living with Schizophrenia. [31:50] The emotional angst of planning for who will care for your son with special needs when you are no longer able to. [42:31] Lois shares her secret to maintaining her mental health through it all. Click here to visit the show notes page to learn more.Click here to listen to the podcastFREE GUIDESDownload the Memory Loss Guide hereInterested in working with me? For Families: Click hereFor Professionals: Click hereHelp others find this show by subscribing and leaving a review wherever you listen to the podcast, or here on i-tunes.--DISCLAIMER: The material on this site is for informational and educational purposes only. Any comments Dr. Koepp may make on the TV Show, blog, or in response to an individual’s story or comments should not be construed as establishing a psychologist-patient relationship between Dr. Koepp and the individual. None of Dr. Koepp's show, website, social media, comments, or group information should be considered a substitute for individualized medical or mental health assessment, diagnosis, or treatment. Dr. Koepp is only representing herself in her TV Show, blogs, and on her website.

In this episode, we talk with Dr. David Wolf, who has contributed so much to organized dentistry throughout the years. Dr. Wolf has been the Indianapolis District Dental Society President and helped to establish the charitable foundation with IDDS. He's been the Indiana Dental Association president, President of the American College of Dentistry, and has raised money for various dental and non-dental organizations. We discuss his journey and what he has learned along the way. What was the triggering event to get him interested in dentistry while living in Evansville? The impact and involvement with organized dentistry has had on him. The trips to Romania and giving back. Discipline and what's he's done to perform at a high-level. Challenges in practice ownership over the years. Mentorship and associate dentists For those that know Dr. Wolf, we had to ask about wine. https://www.linkedin.com/in/dave-wolf-15791596/ (Dr. Wolf's LinkedIn ) https://wolffamilydentistry.com/ (Wolf Family Dentistry)

More than 85% of adults with intellectual and developmental disabilities (IDDs) are unemployed in integrated positions, despite their ability or willingness to work. Laurel Rossi, co-founder of Creative Spirit, the first global organization to create integrated employment for neurodiverse individuals, joined us to talk about their mission. Dope Shit/ Aint Shit - https://www.amazon.com/Small-Axe-Season-1/dp/B08J4HRR4P - Small Axe Season 1 - https://www.youtube.com/watch?v=h0rfCYy9jbI- You Love Me Beats By Dre - https://www.youtube.com/watch?v=6_pru8U2RmM- The Whole Work from Home Thing Apple - https://www.youtube.com/watch?v=YPq23RWpgPM - Match Made in Hell Match.com - https://www.youtube.com/watch?v=CSEivPL1rbY - The Punishment Signal City of Mumbai Creative Spirit - https://www.creativespirit-us.org/ - https://twitter.com/hiredifferent - https://www.linkedin.com/company/creative-spirit-us/

Today's episode, I have a fantastic conversation with Laurel Rossi, who's Co-founder of Creative Spirit and CPO at Organic. We talk about her incredible career and why she co-founded Creative Spirit which helps people with IDDs get meaningful jobs at advertising agencies. We discuss how companies can get involved and support their employees as well as why this is an economic justice issue, especially for women of color. Find more about her here: https://www.creativespirit-us.org https://www.dol.gov/agencies/odep/initiatives/ndeam Please Rate, Review & Share the Reset Podcast wherever you listen!! --- Support this podcast: https://anchor.fm/the-reset-podcast/support

Dr. Maulik M. Trivedi discusses the troubling link between those with intellectual and developmental disorders (IDDs) and COVID-19. Rep. Bacon responds to accusations he knew about this coronavirus last November, Elkhorn South's principal defends some "racist"/"patriotic" students, and Lucy and I try to inform about Jeffrey Toobin's "ZDI" incident without giggling too much.

Lanie Labens, Owner, IDDS Mangement Twitter: https://twitter.com/lanielabens IDDS Twitter: https://twitter.com/iddsmanagement Website: https://www.iddsmgmt.com/ Instagram: https://www.instagram.com/lanielabens  Follow us on Twitter: https://twitter.com/MyBestStoryShow Like us on Facebook: https://www.facebook.com/MyBestStorySeries Email your stories: MyBestStoryPodcast@gmail.com

This weeks guest is straight fire and we could have chatted for hours! In this episode I have a conversation with Lanie Labens, owner of I don't do subtle entertainment (IDDS). IDDS is a celebrity management company and helps celebrities do appearances such as Comic Con. Lanie's list includes Ricky Whittle, Breckin Meyer, Christopher Larkin, DJ Qualls, Erica Cerra, Omid Abtahi, Richard Harmon, and Mechad Brooks to name a few. Ladies, her client list is full of good looking men! Lanie dishes about what it's like to be a female agent in a male dominated world. Lanie started this business in her early 20s and talks about how being naive worked to her advantage and she just went for it. She also gives us some "celeb gossip". Lanie talks about her difficulty childhood and how she found her confidence in dolls. Lanie never doubted that she would do amazing things, despite feeling out of place as a kid. Lanie has a youtube channel that showcases her dolls. She talks about what her dolls mean to her and how she was able to find her confidence with them. Lanie is a fearless in life, business and the pursuit of happiness and is not afraid to be who she is. Connect with Lanie: https://www.iddsmgmt.com/ https://www.youtube.com/user/Alysonsfriend https://www.instagram.com/lanielabens/

In this conversation with Dr. Margaret Newbury Jones, here out referred to as Margaret, of SHADE Consulting and Counselling we dive into the topic of sexuality and disability. We discuss what self-advocates, families, and supporters need to know about sexuality and Intellectual/developmental disability (IDD). She answers the questions; Why is knowing the language of our bodies so important? Where do I go to find a partner?, What is the role of a paid supporter, and Should we be allowed to have sex and watch porn in the group home?. Margaret’s career has focused on working with folks of all ages with intellectual and developmental disabilities (IDD) and other disabilities for 25+ years. She worked as a public-school special educator for 15 years before beginning to work as a consultant and counsellor focusing on trauma, sexual health and folks with IDD. She works directly with clients with IDD as well as their families and supporters and is known for providing engaging workshops for families, self-advocates, front line workers, and other professionals. She is most importantly a family member of a sibling with IDD, her best teacher.   Why is it so important for us to talk about sexuality for people with an intellectual or developmental disability (IDD)? Margaret: “Everyone is a sexual being; it doesn’t matter if you have a disability or not.” Eric: Other than sexually transmitted infections (STIs), pregnancy, general health are there other reasons we need to be talking about sexuality for people that have an IDD? Paraphrasing from the podcast, Margaret shares; “Safety. People with IDDs are much more vulnerable to being abused and taken advantage of. Also, a lot of it is about autonomy and making informed decisions and not feeling like someone else gets to make those choices for you. We don’t have to allow others to make those decisions, that is a person’s right [to make those decisions] when they are an adult.   In terms of statistics, now big of a problem is sexual abuse? Paraphrasing from the podcast, Margaret shares, “There aren’t any good solid stats – the research you referenced is from the 80s and 90s. [Eric referenced stat – 83% of women, 35% of men with IDD are sexually abused] The stats can vary from 2 percent to 60 percent. But what we do know, is that rates of sexual abuse for people with IDDs higher than the general population. Also, just like the general population, people with IDDs don’t report, don’t know how to report, [or don’t have the language to know they were sexually abused as we discuss below].”   What do self-advocates need to know about sexual health? Paraphrasing from the podcast, Margaret shares: “Language – if folks don’t have the right language to tell us that something happened, how can they tell us? If you don’t know the language of your body, how can you tell somebody when something goes wrong?” Margaret shares a story sex educator Meg Hickling’shttps://www.amazon.ca/Books-Meg-Hickling/s?rh=n%3A916520%2Cp_27%3AMeg+Hickling work where Meg was going into prisons and working with inmates and teaching them sexual health. When she had the opportunity, she spoke to sex offenders and asked them how they looked for their victims. The sex offenders told her that they look for people that don’t have the right language for their bodies. They said to her that if they do have the right language, they are more likely to tell. If they don’t have the language, they are less likely to tell because they aren’t having those conversations. We also go deeper into the topic of consent on the podcast. Margaret also shares that it is important that people that have an IDD know the basics of sexuality, sexual health, healthy relationships. On the podcast, she answers one of the most common questions she is asked by her clients with an IDD, “Where do you meet or find a partner?”   What do families need to know about sexual health? Paraphrasing from the podcast, Margaret shares; 1) Make sure they have the language of their body. 2) Role of a supporter is a bridge to relationships, not to be the relationship. 3) As families, we need to let the person grow up and not be a perpetual child. If you are 50, you still have 50 years of life experience. 4) Recognize that puberty can be one of the most normalizing things that has or will happen to a person with an IDD. What comes up in your work around menstruation? Paraphrasing from the podcast, Margaret shares; People are put on birth control to manage menstrual periods because families and caregivers feel like it is challenging to manage menstruation. We can teach menstrual management. Families will also say that the person is protected if someone abuses them. Margaret’s response is, “Does that make abuse okay?” We should be keeping them safe from the get-go. We also discuss the issue of consent and menstrual management on the podcast. Margaret shares, “We tend to do things that are timely. We don’t take the time to make sure that people fully understand, fully consent, and fully process what is going on.”   What do supporters and organizations need to know about sexual health? Paraphrasing from the podcast, Margaret shares; 1) Define the role of the supporter as a bridge to a relationship, not being the relationship. 2) Organizations need to have a sexual health policy. Everything is then dealt with similarly, and it addresses the individual sets of values that people delivering the support have. 3) Supporters need to be aware of their own beliefs and values. We also get into interesting questions of: Should people with disabilities be able to have sex in the group home? Should people with disabilities be able to watch porn? To hear these answers, you need to listen to the podcast! I thank Margaret for the engaging conversation and for sharing her wealth of knowledge on sexual health. Margaret has also provided us with a library of resources on sexuality and disability below. Love & Respect, Eric   Resources: Sunny Hill Education Resource Centre (SHERC) – This is a lending library with many sexual health-related materials. Email: sherc@cw.bc.ca Website: www.bcchildrens.ca/sherc Sexuality Education for People with Developmental Disabilities (2018) – Elevatus Training – www.elevatustraining.com Life Cycle – How We Grow and Change: A Human Development and Sexuality Education Curriculum. Varicheck, S.M. & Tolle, R.K. (2008). Life Cycle Education Consultants. www.lifecycleeducation.com www.real-talk.org   Websites (these are a combination of safe sexuality websites as well as websites addressing trauma/self-regulation): www.beaconhouse.org.uk www.safehandsthinkingminds.co.uk www.self-reg.ca www.northstarpaths.com www.booksbeyondwords.co.uk www.tascalberta.com www.teachingsexualhealth.ca www.safehealthschools.org www.urbandictionary.com www.pflagcanada.ca www.advocatesforyouth.org www.sexualityandu.ca www.planetahead.ca www.plannedparenthood.org/info-for-teens www.wontgetweird.com www.teenhealthsource.com www.goaskalice.columbia.edu www.teengrowth.com     Books Asperger’s Syndrome and Sexuality: From Adolescence through Adulthood – Henault, I (2006). Jessica Kingsley Publisher Autism-Asperger’s and Sexuality – Puberty and Beyond – Newport, J & Newport, M. (2002). Future Horizons Boys, Girls, and Body Science – Hickling, M. Harbour Publishing A Five is Against the Law! Social Boundaries: Stright UP! An Honest Guide for Teen and Young Adults – Dunn Buron, K. (2007). Autism Asperger Publishing Co. It’s Perfectly Normal: A Book About Changing Bodies, Growing UP, Sex and Sexual Health – Harri, R. (1994). Candlewick Press Protocol for Personal Care (Adult or child) – Available at Community Options http://communityoptions.bc.ca/about-us/protocol-books/ Sex, Sexuality and the Autism Spectrum – Lawson, W. (2005). Jessica Kingsley Publishers   Dr. Margaret Newbury Jones Contact Information www.shadeconsulting.ca 778-215-0132 info@shadeconsulting.ca

How to create a life worth living? … am I implying that there are lives that aren’t worth living? This a big question that I ask you to consider for yourself.   People with developmental disabilities are devalued and suppressed (largely unconsciously) by society, our families and even ourselves (I am guilty too).   When a person is devalued, it is very difficult to access the opportunities that everyone else can access, and often results in isolation, loneliness, and suffering. Again, I ask - A life worth living?   Well, what I do know, is that I can do better, and we can do better, and our society can do better.   And, and it starts with a vision.   Why do we need vision? Well, as human beings the sense that we trust the most is our eyes, we are looking out for dangers and rewards. Also, where we look is where we go - If we are surfing and we are looking at the rocks, we will end up on the rocks, if we are looking at the beach, we will end up on the beach. Here I am talking about vision as one of our 5 human senses. However, these truths about our sense of vision apply to our future. If we can imagine, or see in our minds, where we want to be 5 years from now... we can trust that we can get there, and we move in that direction. We are looking at the destination we want to get to 5 years from now and will move in that direction, just like the surfer that looks at the beach and steps off their board into the soft sand (instead of crying out for help to be saved while being pushed upon the jagged rocks).     In this conversation with Michael Kendrick, we discuss 'Imagining Better" and we attempt to answer; What is vision? Why is vision so important for people with IDDs? and, How do you go about creating a Vision?     Michael Kendrick PhD. is a well-known international consultant in Human Services. Michael is involved in consulting, education and evaluative work with many governments, private agencies, advocacy groups, community organizations, universities and colleges across the globe. His work has involved training, evaluations, strategic planning, critical problem solving and confidential advice in the areas of mental health, disability and aging with an emphasis on persons requiring long term support.   What is Vision (the future looking kind)?   MK: "It is the way we see the world. It differs from one person to another. It is possible for people to have different content in their vision. We might have no vision on some subjects because we have never seen them before, where other areas we might have detailed visions. Vision might change over time - our life experiences shift our vision.   For example, the decision to see the good in people would be a way to approach people as if there is good in people. If your vision is that people are nasty or unpleasant, then the way you will see people are nasty because that is what you are looking for."       Why is it important for an individual with a Developmental Disability to have a vision?   MK: "A vision with opportunities can create life-giving possibilities. Without that there can be no sense that these possibilities exist. [For example] A lot of people with disabilities were raised with the belief that work and employment would not be a part of their future. This persuades people through conditioning and reinforcements [what they will not work] through other people’s world views. This might mean that people have many undeveloped, unrecognized potentials and capacities that are never explored because of the limited vision for them and also the conviction that they don’t exist."   EG: If you don’t have a plan, you are part of someone else’s plan, and their plan might not be that good for you.     Society's Collective Vision:   MK: "There is also a collective vision for society, such as the indigenous people in Canada is one that is devaluing. All societies tend to produce devalued groups at the margins. People might not be conscious of it at the surface."     People with DDs are devalued by society. How do you break free of societal devaluation?   MK: "A disability is seen as a negative feature of a person, people then generalize from the disability to the person entirely. You are no longer a full human being, you are a human being that is lacking. If you wanted to change that, then you would have to say that your disability need not impact the fullness of your life potentials.   With the person-centered movement – it is the person that matters, not the disability. It starts with what is the fullness of this person’s humanity and how can this be realized. The person is seen as full of potentials, notwithstanding that they live with some sort of impairment.   Be honest and accurate about the disability, but not giving it more emphasis than its needs. Living with the impairment in a practical way."       How do we go about creating a vision?   MK: "People with developmental disabilities are much more likely to be in segregated settings.   We can ask, What would be the inclusive or socially integrated option, vs the segregated option?   Families have been schooled for the segregated option. Need to ask the question, what would the inclusive option be?   There might be impediments, but that doesn’t mean the person can’t join, but we just need to figure out how to overcome it. What would support the person to be successful in that situation?   Vision can shift, and it can create new life opportunity. Vision creates realities.   From Social Role Valorization (SRV) we can look at the Culturally Valued Analog (CVA). [CVA is simply] What would a person of the same age be typically doing with their life? If you are 6 years old, would you be in school? If you are 25 years old, would you be working or furthering your studies? It helps people look at things in normative terms, which builds vision for what the person could conceivably access.   You find your place in the CVA, to do what suits you by following things you might be interested in. CVA is massive and there are so many opportunities, you just need to find what appeals to you. [You can ask] What resonates with that person’s nature?"       Where do I start when creating a vision?   MK: Always do things with others. This gives you more resources than trying to do it yourself. Not everyone is good at imagining better, you want to pick people that are imaginative. You build vision over time - revisit and refashion on an ongoing basis.     Should you discuss shared world views and values before starting the visioning process with others?   MK: "To the extent that you can do this, it is very consciousness raising. It makes us aware of values, principals and also priorities that people have. For instance, people don’t like to do things that are difficult. When you are going to break new ground, you have to open yourself up to new challenges. You have to look for people that can not only imagine better but are also interested in the doing.   [Also,] seek examples of imaging better. If someone has already achieved what you are doing, it is conceivable. For example, in the early days when we were trying to get people a home of their own, there weren’t many examples. Now there are many.   See what people have already accomplished. Stories and videos.   Join social networks that share a common interest. For example, joining a group of other progressive-minded families. It is harder to do this in isolation."   If you are looking for examples and ideas a good place to start is the Partners For Planning Learning Centre.        Michael Kendrick and I also discuss family mentorship, role modeling, life-giving vs live-denying choices, and leadership on the podcast. These are important parts of the conversation, which you can access by clicking on the player below.   In closing MK Shares (in summary):   “Vision won't prosper unless there are leaders that mobilize people around the vision. You have to have buy-in and you have to win the buy-in of others. [This is] Not just individual leadership, but collective leadership. Investments in visionary leadership are a good investment. You also need leadership renewal because it is a long journey. People need ways to become renewed and to get energy. A lot of this comes in the way of social networks. Renewal of vision is important, so you need renewal. It takes leadership to get the implementation of vision.”     If you received value from reading this blog or listening to this podcast episode I encourage you to share it with someone else you feel would benefit.   The Empowering Ability Podcast and Blog are made possible entirely by you, the support of listeners and readers. Thank you for considering a contribution to this work with a subscription!     Love & Respect, Eric Goll  

Here is the secret.... it is to start with developing valued roles. What is a valued role? A valued roles is the answer you give to the question 'What do you do?' when you meet someone new. [more on valued roles below] Guest Genia Sthphen also shares her story as a sibling, a mother to two sons, and how she has helped to create the good life for her son Will.   Professionally, Genia is a midwife to many, and an activist with a mission to band together with families to joyfully pursue the good things in life. She recently launched the Good Things in Life, which is an online community for young families who share a vision of the good life for their kids with disabilities.      You can listen to this conversation in its entirety by clicking play on the player below, OR by clicking one of the following links to listen on your favourite podcast player; iTunes, Spotify, and Google Play.   Growing Up With a Sibling that has a Developmental Disability (DD)   Genia is the 3rd of 4 daughters, and her younger sister Kate has a DD. Genia’s two older sisters are a fair amount older, and it was really just the two of them (Kate & Genia) when they were growing up.   Genia remembers going to appointments with Kate where they had Kate do silly things, like hold onto the pencil, and they would pull on it until she let it go. Kate didn’t care much for holding onto the pencil and as a result, was diagnosed with having poor muscle tone. But, Genia and Kate thought it was funny because Kate would drag Genia around the house on her back by her toes.    Genia recalls, “At 5 mom sat me down on her lap and told me that Kate had a disability. Mom was serious, it was an occasion, She explained Kate would learn more slowly than other kids. I responded by crying. I was trying to figure out what was expected in this situation, and it was clear to her that the appropriate response was to be sad.”   It was a big deal for Genia’s mom. She had never experienced someone with a disability, Her mom was terrified, intimidated, and overwhelmed. It was something worth crying about for her.   Genia’s mom reached out and started to connect with other parents and other people that knew more than she did. She surrounded herself with this community and exploded into a powerful advocate. She stopped delivering the information in a way that elicited sadness and started having really high expectations. She had connected with some people that had worked with Dr. Wolf Wolfensberger, who developed the social theory of Social Role Valorization (SRV).   Genia attended her first SRV workshop at 15. It taught her language, and how the world works for people that are devalued.   Key Insight: Connecting with other families is important. Not just getting connected, but who you get connected with. What are their beliefs and mindsets? How you deal with grief and fear is guided by your mindsets and fear for a person with a disability.     When Genia’s second son Will was born he was very very sick. Genia recalls, "we weren’t sure he was going to make it. They were telling the family that he would have significant disabilities." Genia’s response was “Well yeah yeah yeah, but is he going to make it, let's focus on what matters here. And he did [make it!].”     What is Social Role Valorization (SRV)?   GS: “SRV is the universal ways that people are devalued in society. Devalued people are not able to access the good things in life the way that valued people are. For example, devalued people do not have the same opportunities for personal growth, education, meaningful work, freely given relationships, pursuing their interests. People access the good things in life through the roles we play in society. It is also how we connect and understand each other. One of the first questions we ask someone is “what do you do?”. It helps us understand and relate to each other through roles.”     There is No Risk-Free Path   GS: “If your major fear is that someone is going to be hurt or rejected, and the way that you prevent that is by keeping people protected and isolated from the people that might hurt them, then that leads you down a vision that likely includes a lot of services and people paid to keep the person safe.   Alternatively, if your mindsets and beliefs are that safety for vulnerable people comes through relationships, this leads you down a path of life in the community.   There is no risk-free path.”     What Does The Good Life Look Like for Will?   Listen to the podcast to hear how Genia’s family has thought about the role of student for Will. Genia and her family thought through the things that were likely to increase people’s high expectation and positive image of Will in the role of student, starting from the age of 2!   GS: “Will is now 12, and we think about for his peer group what are the typical valued social roles that a person holds? And, what are the kinds of opportunities that those roles bring? Then we pursue those things.”   Want proof!?! Watch the video below.     Video: Will Enjoying The Good Things In Life   Key Insight: Look to what is typical for people that don’t have a disability at that stage of life and focus on the roles the individual could hold to create your vision. Additionally, the person supporting needs to understand the social role and also have the social currency to help them get there.     In this podcast, Genia and I also cover topics including raising the consciousness of devaluation in our society, the experience of being a mother with a child that has a disability, and what the experience of having a sibling with a disability.    Tweet-able Moments from the conversation with Genia Stephen:   "Devalued people are not able to access the good things in life the way that valued people are. For example, devalued people do not have the same opportunities for personal growth, education, meaningful work, freely given relationships, pursuing their interests."   "...if your mindsets and beliefs are that safety for vulnerable people comes through relationships, this leads you down a path of life in the community."   "Look to what is typical for people that don’t have a disability at that stage of life and focus on the roles the individual could hold to create your vision."         If you received value from reading this blog or listening to this podcast episode I encourage you to share it with someone else you feel would benefit.   The Empowering Ability Podcast and Blog are made possible entirely by you, the support of listeners and readers. Thank you for considering a contribution to this work with a subscription!     Love & Respect, Eric Goll         Resources:   Will Social Media: Theadventuresofwill.ca     The Good Things in Life --> For Parents of young children with IDDs. Goodthingsinlife.org.   Contact Genia by email: Genia@goodthingsinlife.org   Creating Valued Roles with Janet Klees: Click Here           Too Busy to listen to the podcast now? Listen on the GO!   The Empowering Ability Podcast is available on iTunes and all other major podcast apps so that you can listen while on the go from your smartphone!  

If you’re into grainy sludge, feel free to skip this episode. For the rest of us, John Holahan, founder of Simply Thick, is here to talk about xanthan gum, rheology, and IDDSI. Even though xanthan gum sounds like a substance mined on a distant planet, it’s been around forever and is a widely used food thickener (for people without dysphagia). John realized there were myths to be dispelled and got to work making a better thickener for patients with dysphagia. And when he found an Australian company with an easier to mix product, he partnered with them. No surprise then, that when Simply Thick learned about IDDSI, they were all in. IDDSI is coming for us all, so lets get excited! My puree won’t be your nectar-thick anymore! Show notes can be downloaded below. To share your thoughts: - Join the MedSLP Newbies Facebook group - Share this episode on Facebook or Twitter To help out the show: - Leave a review on iTunes. Your comments help me immensely and I just might read it on the show! - Contribute at patreon.com/swallowyourpride Download Ep. 073 Show Notes! This Month’s Featured Affiliates: If you like our work, support us on Patreon for as little as a dollar a month! Previous Next Previous Next

Learn about the Open Future Learning training resource for supporters of people that have an IDD, & how Ben Drew is fighting the oppression of people with IDDs.   In this podcast/ blog I had a pleasure of speaking with Ben Drew, Founder of Open Future Learning. Ben has over 20 years of experience working with people with an intellectual or developmental disability starting as learning disability nurse, then going on to create an individualized housing and support service, and he is now the Founder of Open Future Learning. Ben is also an incredible storyteller and even though this podcast is lengthy, it is a pleasure to listen to.   Due to the length of the podcast, the blog is broken down into Part 1, and Part 2. In Part 1 of the blog, you will learn about the Open Future Learning training resource for supporters of people with intellectual or developmental disabilities (IDDs), and Ben's life journey to fight oppression and create ordinary incredible lives for people with intellectual or developmental disabilities. In Part 2 of the blog, you will learn about 3 foundational support principals for exceptional support. As always, all of these insights can be heard by clicking play on the podcast player below.     You can listen to this conversation in its entirety by clicking play on the player below, OR by clicking one of the following links to listen on your favourite podcast player; iTunes, Spotify, and Google Play.   What is Open Future Learning?   Open Future Learning is an Online learning resource 100% dedicated to the field of intellectual or developmental disabilities (IDDs). The platform is developed for support staff, but anyone that touches the lives of people with IDD can benefit from the resource. The platform has a wide range of learning modules (for example: abuse prevention to social valued roles) which are delivered as interactive multimedia books. Open Future Learning is known for their short films and they have an on-demand video library with just over 700 short films featuring the leading global thinkers on IDD. They have also created a new product called Side-By-Side learning.    Ben explains, “ We have the saying from self-advocates, ‘Nothing about us, without us’, but we don’t live up to this. Training is one of those things. So we developed ‘side-by’side’ learning. The person that receives the support and provides the support do the learning together. They are short 30-minute interactive learning modules."   Ben continues, "Much of the content is created in collaboration with many of the leading minds in the developmental disability community. It is a really financially efficient way to get people to access these leading minds, compared to only the select few that were able to go to a conference."   The platform is designed for support organizations and priced accordingly, however, if you are an individual learner or a family and you want access to this resource you can email Ben and he will help you to access this resource. Email hello@openfuturelearning.org       Ben Drew’s Mission To Fight Oppression and Create Ordinary Lives for People with IDDs:   Paraphrasing from the podcast, Ben shares his story:   “I grew up in the UK in a small town called Devon. On the outskirts of the town, there was a small community for people with IDDs. It was kind of like Camphill without the farm. My best friend from school lived in that community, his parents managed the community. He lived in this cluster of houses where people with IDDs lived. It was great because we played football (soccer) on demand, it was mostly guys, and I got to know all of these people in the best way. When these guys came into the town the way that other people interacted with them was different. They teased them, they spoke behind their backs about them. This always sat with me and it was the starting point to wanting to work with people with disabilities. Went I was 18 years old I went to a summer camp for people with IDDs in the US, and really enjoyed it. Then came back to the UK and got a job with a guy named Gary Kent. He lived in a large residential home with 20 people with IDDs. It was a hospital that had been converted for people with IDDs to live after the institutions closed. Gary lived there as well but decided he wanted his own home. He left and purchased his own home in a nearby village. When Gary came back to the residential home he said he had to close down the residential home. He had seen the other side of life. He was learning how to cook, he was in his own community, he had control over his life and his environment - and he wanted everyone else to have that.   There was a guy that lived there [in the residential home] that was physically abusive, and there was a guy that was a runner. When the runner chose where he wanted to live, he never ran away again. The guy who was a hitter moved into a home of his own and he stopped hitting people. You can be getting really good support and if the environment isn’t right and the location isn’t right - you can only so so much.”   Insight: This was a huge lesson for Ben when he saw the change in people when they got control of their lives. These oppressive environments occur in residential homes, but they can also happen within our family homes. Speaking from personal experience, my parents home became an oppressive environment for my sister Sarah (who has an IDD) due to a lack of choice, social isolation, and lack of transportation. Most of Sarah’s decisions were made for her and most things were done for her. Of course, these things were done with the best of intentions, but this caused more stress and anxiety on everyone in the household, everyone entering the household, and suppressed opportunities for Sarah to grow. Sarah has moved out of her parents home and into a home shared with me where she now has choice and control of her life.   Ben continues with a leadership insight:   “Vulnerability of leaders is important. Gary was always incredibly transparent. He would always share his mistakes and things he had messed up. The residential home was just another thing. In order to empower everyone else underneath him, he had to be that way. The people underneath him could also make mistakes, they could also mess-up. I see cultures in organizations coming down on people. If you make a mistake it is a warning, if you make 3 mistakes you aren’t allowed to do things anymore. That culture just doesn’t work.”   Ben then when on to set up service to help 100 people with IDDs over 6 years to buy or rent their own home, manage their own supports with their own budgets, in Bristol UK, using the formula Gary gave him. Ben then moved to New York, and that is where he started Open Future Learning.   Part 2 of this blog is coming on December 18th, with insights on 3 fundamental support principals that are foundational to great support. If you want to learn about these core support principals now, you can do so by listening to the podcast.   Ben is also the creator of memes that help to nudge people in the direction of being more accepting, more inclusive, and to develop the understanding of what it is like to live with an intellectual or developmental disability. Here are a couple of my favourites:           If you received value from reading this blog or listening to this podcast episode I encourage you to share it with someone else you feel would benefit.   You can also support this work by subscribing. This podcast and blog is supported completely by listeners and readers like you. Thank you to those that have supported by subscribing!     Love & Respect, Eric Goll         Resources:   http://www.openfuturelearning.org/   https://www.youtube.com/user/OpenFutureLearning   Email: ben@openfuturelearning.org       If you received value from this content please leave me a review on iTunes. By leaving a 5 star review on iTunes you make the Empowering Ability Podcast more discoverable, and more families will benefit. Click Here To Leave a Review on iTunes       The Empowering Ability Podcast is available on iTunes and various other apps so that you can listen while on the go from your smartphone!   Click Here To Listen on iTunes

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UC Berkeley PhD candidate Pierce Gordon discusses his research on the evaluation of innovation for global development issues, from improved sanitation to energy access. Working within design theory, Pierce has partnered with IDEO, IDDS and other development groups to argue for more inclusive, rigorous and less technologically-focused approaches to innovation.TRANSCRIPTSpeaker 1:Method to the madness. Speaker 2:It's next, Speaker 3:you're listening to metro to the madness, a biweekly public affairs show on k, Alex Berkeley, celebrating Bay area intubated. I'm your host, Nicholas Nala. And this week we'll be interviewing Pierce Gordon, a phd student in the energy and resources group at UC Berkeley studying design for development. And we'll be discussing the innovation of innovation [00:00:30] in the developing context. Hey, welcome to the show. Here's what's going on. So you describe yourself as a design researcher. I do. Very Speaker 1:much. So. What does it mean to research design? It means people try their best to, um, turn our world from its current state to its preferred state. Um, and while they do so, they, uh, create [00:01:00] interventions or technologies. They engage in activities, they connect with each other, they connect with others that they try to help. And all of these, um, realities that are created, uh, about, um, that process and about what comes out of that process is, is interesting. Um, and because people are trying to do it every single day. Um, understanding how to think about it, how people apply the work and how to um, [00:01:30] do it better. So let's shrink the problem space a little bit more. Because your focus specifically on development issues, can you take us through some of these development issues where people are applying design theory? Sure, definitely. Man. Many, many, many people are trying to do design, uh, design for development even if they say they're not. Speaker 1:Um, so that does not shrink the problem space, uh, that much, but it does a little bit. So, um, I come from [00:02:00] the, um, philosophy that we are all designers. Whether or not we acknowledge it, we create something. Uh, we create some people, they actively create technologies. Some people, they create clothes, they create businesses. Um, for international development. The range of interest is just as wide. Um, people work on gender issues. People work on, um, health. They work on, uh, energy and economics. Behavioral Economics [00:02:30] and design for development are people that try to address development issues by creating something new. Um, there are many people that have very less constricted, more constricted definitions. Um, but for me, anyone who creates, especially for, uh, addressing global poverty issues in all of their forms, [inaudible] is a designer in this field. Okay. And these groups have [00:03:00] Nobel ambitions in some ways to apply design thinking to innovation in development. Speaker 1:Yeah. What are the problems associated with them? Why did you, why is this your focus? It's not, there are a few problems. Um, one big problem that is outside the realm of design is people have been designing a, not using design thinking for a long time and they've been failing for a long time. Um, did you explain design thinking then? Sure. Uh, when I say [00:03:30] design work, I usually say things very broadly. And when I sometimes say design thinking, it is most of the time used as a, um, umbrella term for the methods that have been adopted by, uh, communities like having adopted or pushed by Ideo or the d school or, uh, MIT's d lab, a d school at Stanford. Um, to understand the context in which people live. [00:04:00] Um, they might go into, uh, West Oakland and try to address the problem of, uh, food deserts. Speaker 1:And they say, what are the issues around them? Who are the people, uh, where, what is the environment like, uh, what are their perceptions and work and they shop and just as much ethnographic information as possible. Um, they take that in and then with that information, they try and create, um, understand problems that they can solve themselves [00:04:30] and then create solutions to address them. Um, that process of iterative, um, understanding, brainstorming, creation, and testing out those interventions. I call that design thinking. The, the thing that makes it interesting, uh, that is new from other folks is that it's, um, relatively systematic, uh, that it's spaces of thought that people usually know how to use, uh, but that they don't usually try and think [00:05:00] of in these either sequentially or together. Um, they do parts of it. They might not do others. Number one, a lot of people have been designing and they've been failing to specific examples are the, um, play pump, uh, in international development. Speaker 1:Um, they got a whole bunch of money from Jay z and from, uh, I believe Bano and they, they did a whole bunch of investment and then a couple of years later, a whole like about a quarter of them were broken down and there are reports [00:05:30] of people. The main point of the play pump is to try and use children, um, in the fact that they want to play around a carousel to pump water out of the ground. Um, it just, it wasn't working and it didn't have the context of the people's, um, environments that they put them in, in mind. Number one. Uh, number two is that people realize across different disciplines, either in business or in all of these fields I have established, um, that design helps [00:06:00] them think in ways that they didn't think before. It helps them think about themselves as creators. People usually don't think of themselves that way. Speaker 1:Um, and it's new and a lot of people are adopting it, but a lot of people are adopting it in the wrong ways. Um, which people are adopting it or these organizations or is this, okay? So an example of an organization that just started adopting it was um, Unh cr who's at high council for Refugees. So they deal with individuals that are trying to in conflict areas and [00:06:30] um, trying to deal with the human rights of communities that have issues. Um, design thinking was adopted to the u s army and there are a few reports on the effectiveness of thinking, trying to chart out the problems that they aim to solve and then trying to work towards solving them. Um, who else? The Gates Foundation. Uh, the World Bank is trying to do design thinking work. Um, many, many folks. Okay. So design thinking is an innovation on previous methods of engineering [00:07:00] solutions, but you have found even there, there are problems within that, especially within the development context. Speaker 1:Yes. What's the, what are those? Um, the one of the biggest ones is the idea that what people say isn't necessarily what they do. Um, a lot of people say they are designers or they're engaging in design thinking work, but, um, their practices are a difficult to record and document. And B, a lot of the times they're, even [00:07:30] if they were, um, there are certain activities that they say they're doing that they're not. Um, so this is actually one of the papers that I wrote. Um, ideo, um, very well known and that's one of the main entities. Uh, they are designed consultancy firm that got started in about the eighties, and they do fantastic work, um, towards trying to push design thinking particularly, um, out to the world. And um, they have a platform that they created [00:08:00] about five, six years ago called open ideo, um, where anybody can be online. Speaker 1:They can think of different social issues from educating refugees to, uh, figuring out how to pay for college better. So there's a disconnect between the people that are on the website and the communities that they try to assist. Um, barely anybody that did design work and suggested ideas [00:08:30] that we, that either won the project or, um, were related to, um, the running of the design solutions actually consulted end users. And since then, ideo has been doing a lot of work to try and connect, um, with the end communities. But the reality is, um, for a lot of these projects, people are usually sitting at their computers doing open idea work and these ideas and they are really disconnected from [00:09:00] the communities that they say they're trying to address. And so you tried to take some of these ideas and apply them to a project in Botswana, kind of kindness. Speaker 1:Um, it's these ideas of how to engage in design. Um, I admit that my work is better. It's hard to grasp for the first few times because it took a while for me to understand it myself. Um, but that's not exactly [00:09:30] what I was trying to do in Botswana. Um, so I just came back from research, uh, ethnographic research and I'm trying to go back as well. But, um, what I noticed is, um, what, what I call it is the, it's an ethnographic study of the innovation ecosystem in Botswana, particularly around evaluation thought, um, evaluation practices. Okay. So who are the players in the ecosystem innovation? Oh, there's, [00:10:00] there's a lot that I don't know. Um, and I'm still trying to learn more. Uh, that's one of the great things about, uh, ethnographic work. You can always go deeper. Um, but there are particular ones that, um, coalesced around. Speaker 1:One of the activities I was a part of called the international development design summit. Um, it's been run out of, uh, the d lab at MIT for the past 10 years. Um, and there were a whole bunch of people that were interested [00:10:30] in helping with this work, um, in different ways. So one of the main actors is the local community of iden international development innovation network. The, the main entity that run these large design summit, our was four, four, four weeks long. ADM, 10:00 PM designing contextual technologies for development issues for my issue was the deep sand wheelchair. Um, what does the deten deep sand wheelchair, deep sand wheelchair. Um, so it's a wheelchair that works in deep sand, [00:11:00] it trying to make one, so most wheelchairs the way that they are created, especially that hospital wheelchair that most people don't, um, take notice of. Um, it works very horribly in deep sand. Speaker 1:Sand gets everywhere, especially in the Kalahari desert where we were working. Um, there is, uh, the opportunity that it could get punctured by some of the, um, foliage that's out there. Some of the plants. Um, it's, it, it's very hard to get it repaired. Um, the communities that, [00:11:30] uh, have them, they probably don't have the right seating. It probably, um, the ergonomics of the seating is probably, uh, not the way that it should be and people can't get around. Okay. So before we get into the details of that, of all the projects that you could potentially have worked on there, why the deep sand wheelchair? We were, we were put on that project I was at, that actually wasn't first, uh, choice. There were six projects and my first choice I believe was the, um, easy washing [00:12:00] machine. So a lot of they washed my hands. Speaker 1:So trying to figure out a way that you can, um, create a quicker, more economical way to wash clothes, um, without using electricity. Uh, but you asked me also about the actors, I don't know if you wanted me to go deeper into the people that were at idds. Sure. Okay. Yeah, appreciate that. Um, so the, I, I mentioned that because they would want me to say something. They all do great work. I'm one of the first main actors with the University [00:12:30] of Botswana. I'm with great people like, um, OJC Alexa, um, shout out to o j. Uh, he's a cool dude. He's a professor at the University of Botswana in industrial engineering. Um, and Nani, uh, shout out to Nani. Uh, they do great work. Um, and there's the bolts swan to innovation hub, which got started in 2008, I believe. Um, and they, uh, they're doing good work to, um, fund resources [00:13:00] for understanding innovation. They're creating right now the first, uh, innovation, uh, and science park in Botswana. First of its kind, there's another organization called [inaudible] tree. Oh Lord. What does this stand for? The Botswana? Speaker 4:Yeah, Speaker 1:innovation and technical research institute. They got started in 2012 and they're a parastatal that's run partially by the government. Um, these are some of the large entities that try to work towards innovation in Botswana currently. [00:13:30] Um, so they are doing it, uh, and they came together at this idds summit. Okay. So why do all these groups have innovation in their names? Man, that the short answer, the long answer is with the fetishism of innovation or what does it mean? That's a great, it's a good point. Um, I don't want to say what they were trying to do, but I can say why a lot of people love the phrase innovation. It's a buzz word. It's, it's nice. It's interesting, it's sexy. [00:14:00] It's, and that's part of the reason why a lot of people in development are interested in it as well. Um, it's personally, I have the feeling that a lot of people are interested in it because, um, Speaker 1:because other people are interested in it. Well, it sounds nice. Um, and because our people are interested in the creation of the novel somehow, um, partially, but that's also the reason why it's, um, nice to have the word because it's undefinable. [00:14:30] Um, it's, it doesn't mean read. It doesn't mean close. It doesn't mean cloth. It doesn't mean shirt, which has a definable, um, solid definition. Uh, for some people, innovation just means something new. For some people it means, uh, something scalable, something of value. Potentially, uh, for some it means all of those. For some it means the context in which you create it. Um, if something is an innovation there, then, um, it's worth it. And, um, [00:15:00] this non define ability and there are many other reasons why, um, and the sexiness gets people really interested in putting it, um, on their brochures, in their pamphlets. Speaker 1:Um, and honestly that's part of the reason why I got interested in this in the first place because most people do not define the words that they use, especially with innovation. Uh, they say it, they spout it, they potentially get [00:15:30] money off of it. Um, but are they doing it the way they should be? So, okay. So to go back a little bit, um, to ask a better question about the potential projects that were laid out, why were those six projects that you could choose from at your work? Um, why were those six projects selected? Did they take into account end users or was it in a panel of experts? That's what they did [00:16:00] is they went into the community. Um, this was run twice. The idds was run twice. One in 2015, one in 2016 they went in beforehand. Uh, they had a workshop and they asked the communities what type of projects should we engage in? Speaker 1:Um, and people suggested ideas, uh, many different things. And then they went through a process to try and, uh, cut down the ones that, um, seemed worthy to turn into some type of scalable intervention. But over time, [00:16:30] um, that was contextual to the problems of decode. That was the town that we were in and doable in four weeks for our innovation. Um, for the deep sand wheelchair project. One of the only reasons why we could do that is because three research wheelchair experts were working as designed facilitators while we were there over certain periods of time. Um, cause that project, what we were basically working with is folks [00:17:00] who were disabled in some form. Um, and that's a very, working with the sun, which is the community that lives out there is already, um, it's very difficult to do. You have to go jump through a lot of hoops to do it. Speaker 1:But working with Sohn that are disabled, that's, that's another level of vulnerability. It's hard. It's a hard activity to choose design work and it takes people that are, that have been doing design work for [00:17:30] a long period of time. Um, okay. And I want to go back a little bit in your history. Sure. And how did you come around to design work as your backgrounds in, in my program, I went to Morehouse college in the University of Michigan, um, and you get two different degrees from two different schools. Um, got the applied physics work done and started with aerospace. And about halfway through I was like, this, this isn't, I was in propulsion class. Um, I remember, I think, I can't remember [00:18:00] what part, um, but it was, I was there and I was like, this sucks. I don't want to do this anymore. It's not that it wasn't necessary. Speaker 1:And everybody that was doing it, they're, they're working on the wrong things, but it didn't fit for me. I wanted my, uh, career work to be, um, have a moral direction as well. Um, like a direct one that I could see. So I got involved. I actually got interested in this by watching the daily show with Jon Stewart. [00:18:30] It was the episode. I, I everyone that's in development, usually they have something like this, some like thing that ignited their fire. Um, it was the episode where they said one point $2 billion of the money of the $2 billion that was supposed to go to Haiti for the earthquake was nowhere to be found after nine months. And I was like, ah, what was, what is this? Um, and I did my own research in it, understanding, uh, the issues around all of the, um, the [00:19:00] NGOs that were working there and where the money was going and how cholera was becoming an issue and, um, how the entire system of how Haiti was a huge issue. Speaker 1:And it was advertised that people were trying to give as much as they could because it was such a big problem. But all of our efforts went to not in a lot of the efforts were actually work. They actually, um, made the environment worse. [00:19:30] Um, got me really interested in trying to understand how to help those who had the least, um, which is a certain amount of privilege that, that, that privilege that I could say, hey, let me help those that are far away with abject poverty issues. Um, it's, I'm, I'm cognizant of that and I try and grapple with that every day. Um, but I got interested in that. I looked and I was on the path towards phd work. I tried to look for phd programs. Um, [00:20:00] that gave me the freedom to understand how to get involved in international development work, but to find a project that fit, I found urgh the energy and resources group. Um, and they gave me, they gave me that freedom. So, and here I am doing something completely different. So from your origin story or from the daily show? Yeah, I'm John Stewart. And your background in aerospace engineering. Yeah. Got An aerospace [00:20:30] engineering, aerospace engineering, LDL fun courses. It seems like you might shout out to doc just not out to dean. Gallimore thank you. Dean gala more. You did a lot of work to put me on this path, my man. Okay. So it seemed like, you know, you can take your in Speaker 5:development and your intro and your interest in engineering yeah. And melded into engineering for development. Yeah. Designing a better cookstove. Creating a water purifier. Yeah. But you didn't exactly take it that way. I didn't. [00:21:00] What, what inspired you to look at design theory for social innovation and kind of relinquish your engineering background? Guys, this guy asks us good Speaker 1:questions. He does. I like it. Um, so I knew that I was coming into development work with a certain amount of um, handicaps. Um, there were a whole bunch of folks and this is pushed in development. They love people with a specific type of experience [00:21:30] and the experiments usually is set in this narrative. It is, I did x work in y place for z amount of time and now I have this experiment experience and I'm interested in doing this work. Um, for the future. I'm interested in learning about the research and x, Y,Z , and most of the people that are in development engineering, they had some type of experience like that. One of my colleagues, um, who does, who did work in cervical cancer screening systems [00:22:00] in, Oh, I'm sorry, Julie. I think as Uganda. I'm sorry. Um, so what got her interested in understanding of design theory work is that specific experience. Speaker 1:I didn't have that. Um, and I knew people would look at me sideways and development to say, well, what can you really say about this? Um, but with that I did deep thinking to figure out what I could contribute to the field because everybody, this is the point here was contextual. Every time I say I did X and y places at z time, a [00:22:30] four is the amount of time that puts me in a field that puts me in a time-space that puts me in a place. Right? I knew because I didn't have that experience, that the work I could adopt, I wanted it to be adaptable. I wanted the design, I wanted the collection of, um, the way of thinking. And the methods that people could engage in to be adaptable depending on the context that you address. And then I found design thinking and it made sense for all the things that I critique [00:23:00] about design thinking work. Speaker 1:It's, it's a great that in its best theory, anybody can do it in any context to address many, many different types of problems. Um, a lot of people don't try to push that though. They feel like specific people should do it. Um, w when I say that, I mean like engineers, I mean like business folk. A lot of the times there is a sentiment towards the idea that there should be, um, professional designers, [00:23:30] uh, just like the same way they are professional engineers, uh, who are the experts who know how to engage in ethnography, um, who know how to create a scalable, um, rigid, rigorous object like a water purifier or those types of things. Um, and they have a specific type of knowledge, but people that are from different context, from different communities, they have in knowledge that can help them, um, create something that works [00:24:00] for their community and there's not enough crosstalk. Um, there needs to be more crosstalk. So that's why I focus on participation as one of my main, um, questions of design work. Speaker 5:So within, within the context of participation in design work. Yeah. Have you found any accomplishments to date? I realize this may be a bit precocious for you, but at the same time, do you mean have high obtained of counselor's accomplishments? Have you influenced the design process maybe with open ideo [00:24:30] or with idds or started the process of them iterating on, on their systems? Nah. Have I influenced, I might have possibly. Um, I feel like influence is a thing that happens depends Speaker 1:day by day. Um, it's, the situation I ran into was I ran the paper that I did and it was on their early stuff that they worked on and I realized that a lot of the stuff I suggested they were doing after I did it. Uh, they started doing, after I published the paper. [00:25:00] And as part of the problem, uh, research moves slower than a lot of the design work. That's a problem with it. Um, but, uh, for my work in, um, Botswana, uh, I'm also doing a literature review of trying to figure out what designers in development are engaging in and how they're doing it. Um, and that work the main way. I'm, the main reason I'm doing it is to get published. Um, and it would be in a journal and I would try and push the journal as [00:25:30] much as possible, but the average individual wouldn't, they wouldn't be exposed to it. Speaker 1:Um, so, and for the Botswana work, it'll take some time and you've got to work with the community to make something that's of value, um, with my, a bit of evaluation expertise in their expertise of what works in the context. Um, so it's gonna take some time with the research, but there are other activities I'm engaging in that are meant to be a more impactful. [00:26:00] Um, so shout out to, uh, Lord Lauren, uh, Valdez, uh, Brooke Stanton and Julia Kramer, the colleague. We are working towards creating a design thinking for social justice, um, workshop group. Um, we're taught, we're in the talks right now to try and, um, develop and run our workshops in many different communities, um, in Oakland and the bay area. Uh, so the, the ideas is, [00:26:30] um, people can use design thinking not just to create products or projects, but to address social justice issues, we actually, uh, wrote a paper on it. Speaker 1:We're trying to push that and apply it so that people can use for their own good. Um, so does this get at the idea, um, cause you mentioned in one of your papers, and I don't know if this is perhaps the one where too much of design thinking is focused on technical, technological innovation, whereas what might need to be effected is [00:27:00] political dynamics. Exactly. Yes. That was the paper. Um, and my colleagues did fantastic work explaining a lot of pieces to that. Um, that is the case. It is. And I would go as far to say, so technological advancement, it depends on your definition of technology. It's another vague term that people use, but usually when people say technology, they mean objects. They mean I created a, like I said, an infant warmer, a deep sand wheelchair. I created something tangible. Um, and [00:27:30] this is in America, but other people focus on service design. Speaker 1:So how to make sure that the communication between a, someone who was giving a service and the person who's receiving it, um, is designed in the best manner business design. Um, sometimes it's participatory design or public design or urban planning design. That's a very large field that I know not as much in, um, the designing of space. Uh, but even in all of those issues, I, that's why I love to use [00:28:00] the word intervention instead of using the word as technology because, uh, it, it could be an object. It could be a interaction, it could be a business, it could be an experience. Um, even with those issues, a lot of the times designers cannot do not think about the larger politics, the larger history or even their position inside those systems that exist. Um, but that doesn't mean that you still can't use [00:28:30] design thinking methods. Speaker 1:If you were to consider those things, the politics, the history, and it should be considered if we're trying to make lasting, um, and ingenious change like designers say they are, how could people contact you or maybe get involved in these social justice workshops? Sure. Especially if they're in the bay area. Absolutely. Um, so we are very interested in people. Um, if you are a part of a organization as [00:29:00] a social justice organization or somebody that's trying to help the public good in any way. Um, we are, we're interested in, uh, partnering with you to figure out ways to uh, work through using design thinking. Um, so I have all of my handles either on Facebook, on Twitter, on linkedin. They all say Pierce Gordon. 1:00 AM I email if you're really interested in working on this, it's peer scored [00:29:30] in1@gmail.com. So hit me up, I'm interested. Let's, let's talk and this is how people get in contact for the social justice workshops as well. Speaker 1:Yes. For now, absolutely. And for not just for the social justice design thinking for social justice work, but for design consultancy work. Um, for if you want to have a design workshop, um, outside of that for whatever context that you want to talk about research, if you just want to talk about innovation [00:30:00] over coffee, then I'm here, I'm available. Let's talk about things. Great. Well, thanks for coming on, Pierce. Thank you for having me. I really appreciate you, uh, educating us on design theory and innovating on innovation. Man, if we had more time, I taught over and over and over about it. Uh, but I'm just glad to be here, man. Uh, let's talk. Let's talk about this stuff. This conversation cannot end here, so thank you. See acast.com/privacy for privacy and opt-out information.

Alabanza para el viernes 01-22-10. Dirige Linda Lozoya