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Cheryl and Tina emphasize the need for increased education, representation, and awareness about autoimmune conditions and treatment options to reduce stigma and support patients globally. Cheryl and Tina also discuss Tina's advocacy work, including her blog Own Your Crohn's and contributions to South Asian IBD Alliance (SAIA), focused on creating community and amplifying patient voices across diverse populations.See full episode show notes including a transcript here! Episode at a glance:Tina's Diagnosis and Journey: Initial struggles with chronic illness and delayed acceptance of modern treatments like ostomies; challenges navigating cultural stigmas and family expectations in South Asian and other communities of color.Addressing Stigma and Cultural Barriers: The impact of cultural stigmas on seeking timely medical care; Advocating for education, awareness, and representation in autoimmune and chronic illness spaces.Advocacy Work: Founding Own Your Crohn's to share her experiences and connect with others; Contributions to SAIA to amplify patient voices and support global IBD communities.Key Messages: The importance of community, education, and acceptance in improving quality of life for patients; Breaking barriers and promoting inclusivity in chronic illness narratives.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Full episode show notes Click here for full episode show notes including a video of this conversation and transcript.
A new RA diagnosis can be overwhelming, and it's easy to feel lost in a sea of emotions and uncertainty. In this episode, I share my best advice for navigating this new reality—offering practical tips on mindset, building a strong support system, and avoiding the pitfalls of misinformation.You'll also hear from fellow RA patients who share their personal insights and heartfelt encouragement, helping you approach your diagnosis with renewed hope—and, if you're lucky, some evidence-based optimism.Drawing from my 20+ years of living with RA and my expertise as an occupational therapist, I revisit key lessons from Episode 4 (originally released in 2020) and add fresh reflections from my last five years of running patient support groups and educational programs.Tune in for a thoughtful, compassionate conversation designed to help you move forward with confidence and clarity.For full episode details including a transcript:Go to the episode page on the Arthritis Life website!Episode at a Glance: Navigating Your RA DiagnosisCoping with the Initial Shock – Practical tips to help you process the emotions that come with a new diagnosis and adjust to this new chapter of your life.Educating Yourself Without Overwhelm – Learn how to find reliable information about RA without falling into endless internet rabbit holes or misinformation traps.Building a Strong Support System – How to connect with the right people—both in real life and online—so you feel supported, understood, and less alone.Working with Your Medical Team – Strategies for communicating effectively with your doctors and advocating for the care you deserve.Finding the Right Treatment Path – A guide to exploring treatment options with confidence, so you can make informed decisions that fit your needs.Managing Stress & Protecting Your Mental Health – Simple, effective ways to care for your mind and body while adjusting to life with RA.A Message of Hope & Encouragement – You're not alone in this. Hear words of support and reassurance to help you move forward with confidence.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details - you don't have to figure it all out on your own, I'm here to guide and support you!For full episode details including a transcript:Go to the episode page on the Arthritis Life website!
Cheryl and Ayesha also delve into the devastating impact fatigue can have on their lives and share tips for managing and preventing fatigue. Above all, they urge listeners to validate their own feelings and aim for full acceptance, with the hope that brighter days are ahead.Episode at a glance:Ayesha's Diagnosis Journey: Ayesha opens up about her personal experience living with psoriatic arthritis and reflects on the role of race and gender on her treatment. She, highlights the importance of advocating for yourself, especially when navigating a chronic illness without a medical background.Advocacy for Black Women: As the founder of SistasWithPsoriasis and The PsoriaSis Collective, Ayesha has dedicated her platform to advocating for black women with psoriasis and psoriatic arthritis. She creates safe spaces for them to connect, support each other, and share their experiences.The Role of Fatigue: Ayesha and Cheryl reflect on what fatigue feels like for them and how it impacts them on a daily basis. Self-Care Tools: Ayesha's favorite self-care tool? Her yoga mat! She starts every day with a stretch, using it as a moment of peace and wellness.Empowering Words for Newly Diagnosed: She shares heartfelt advice for newly diagnosed individuals, stressing the importance of validating your own feelings and asserting yourself in medical situations.Words to Live By: Ayesha's mantra, centers on putting your spiritual self first, believing that everything else will fall into place. She also encourages full acceptance of life's challenges, reminding listeners that "the only way through is through."Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
David Liew talks to rheumatologist Nicola Cook about the utility of common investigations for suspected inflammatory arthritis in adults. They discuss the notion of pretest probability and how this is used to determine the utility of testing, and the role of specific tests. Nicola also talks about the potential harm of overinvestigation. Read the full article by Nicola and her co-author, Rachelle Buchbinder, in Australian Prescriber.
Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools.He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb's personal insights into balancing work and life offer hope for finding purpose and joy despite the challenges of living with arthritis. Together, they emphasize the importance of living meaningfully through activities like board games, time with family, and staying connected to a supportive community.Episode Themes:Personal Experiences and Resilience: Dr. Kaleb's shares his personal journey with juvenile idiopathic arthritis, from diagnosis at age 3 to today. Self-Management & Lifestyle: Cheryl & Dr. Kaleb discuss strategies for managing physical pain through ergonomic tools, proper footwear, and weight management.Importance of Sleep: The critical role of good sleep in managing chronic illness, including the impact of sleep apnea and the benefits of CPAP therapy.Managing a dual role of patient and researcher: Dr. Kaleb reflects on his decision to “go public” with his diagnosis of JIA after being known as an arthritis researcher, and discusses the pros and cons of sharing your story publiclyCannabis and Pain Management: The evolving research and patient experiences with cannabis as a tool for managing chronic pain, despite its legal and research limitations.Misinformation and Evidence-Based Care: The challenge of navigating biased or incomplete information about treatments and the importance of relying on evidence-based medicine.Arthritis Research and the Role of Learning from the Patient's lived experience: Dr Kaleb explains the importance of the FORWARD databank.com for ongoing research to improve patient outcomes. Entertainment and Personal Interests: The role of hobbies, such as board games and movies, in providing enjoyment and coping with chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.For full episode details include a transcript and video:Go to the episode page on the Arthritis Life Website.
Back in January 2021, I shared the eight most important things that loved ones should know, so they can best support people with autoimmune arthritis. This episode includes messages and insights from twenty-eight other patients!Today, I'm re-releasing this episode with some additional insights I've gained after leading patient support and self-management groups over the last 4 years. Did I miss anything? Let me know in the comments!Episode at a glance:One – We want you to learn what the disease is and isn't.Two – The fatigue can be just as bad as the pain.Three – It doesn't just affect the body – it also affects the mind and emotions.Four – It affects EACH person differently.Five – Daily symptoms are often unpredictable.Six – We want credit for how hard we're fighting, even when we seem “normal.”Seven – Sometimes we need problem solving, other times we need empathy.Eight – Managing the disease itself is a job that takes time and energy.Bonus point: Take care of YOUR needs as the caregiver/friendConcluding thoughtsMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details:For a full transcript of this episode and detailed show notes, go to the episode page on the Arthritis Life website.
In this episode, Stasha shares her diagnosis journey for rheumatoid arthritis and reflects on what it was like being a parent to small children while learning how to adapt to rheumatoid arthritis. Stasha also shares how her quest to merge science-based and natural methods led her to starting a blog. Cheryl and Stasha reflect on the role “obstinance” or stubbornness has played, and reflect on the therapeutic benefits of humor.They also discuss how they view assistive devices in a positive light, and discuss how their identities have been affected by chronic illness.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript:Go to the episode page on the Arthritis Life Website.
Have you ever read a love story that features someone with chronic illness? In this episode, author Marissa Eller shares how living with RA led her to write her debut young adult (YA) romantic comedy book "Joined at the Joints." She and Cheryl discuss the importance of authentic representation in books and media, particularly for those with invisible disabilities.Marissa also shares what it's like to be an author with RA, including strategies to accommodate her needs and how writing can be a therapeutic form of expression. The conversation concludes with a discussion about the best advice for the newly diagnosed.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript:Go to the episode page on the Arthritis Life website.
Caring for our patients means reducing symptoms and occurrences of flare-ups. However, caring for their whole self means a watchful eye on how chronic disease symptoms impact their daily life and mental health. Discovering patterns between depression and anxiety and such chronic diseases, like ankylosing spondylitis, psoriatic arthritis and rheumatoid arthritis, was the focus of Dr. Alyssa Howren's latest study. Today, we take a look at this study, titled: “What Came First?” Population-Based Evaluation of Health Care Encounters for Depression and Anxiety Before and After Inflammatory Arthritis Diagnosis: Disentangling the Relationship Between Mental Health and Arthritis and try to disentangle the web of disease-related depression and anxiety
This week on the UnabridgedMD Podcast, we're highlighting an episode of Rheumatology 101, a livestream series by Dr. Amigues. Dr. Amigues addresses a question from a patient: "Why can't I achieve remission despite being on seven different biologics?" Dr. Amigues delves into the complexities of arthritis treatment, offering valuable insights into:- The importance of accurate diagnosis- Differentiating psoriatic arthritis from other conditions like osteoarthritis and fibromyalgia- The process and rationale behind cycling medications- The role of biologics and why some may not workDr. Amigues also shares a personal story highlighting the powerful connection between mind and body in addressing treatment resistant conditions: sometimes, when we're willing to look, we can see that chronic conditions bring something good to our lives along with the pain. Perhaps this is one of the keys to healing!EPISODE CONTENT_____________________________________________________________________00:00 - Introduction00:33 - A Patient's Question: Struggling with Remission01:00 - Rheumatologist's Approach to Medications01:56 - First-Line Treatments for Psoriatic Arthritis02:41 - Cycling Through Medications03:11 - Importance of Accurate Diagnosis05:01 - Considering Multiple Conditions05:59 - Evaluating Different Biologics07:20 - Taking a Break from Medications08:17 - Story of a Patient's Journey10:07 - Positive Perspective on Chronic Conditions13:30 - The Power of the Mind in Healing15:27 - Summary and Closing Thoughts16:27 - About Dr. Amigues and Her Practice17:23 - Interaction with Instagram Live Audience17:52 - Closing Remarks and Next Live Session Info_______________________________________________________________________________________________Find UnabridgedMD on social media! We appreciate your support.Instagram: @unabridgedmdFacebook: @UnabridgedMDTiktok: @unabridgedmdAre you, or someone you love, looking for a rheumatologist near you? Maybe you queried Google for the “best rheumatologist in Denver” and felt that no other arthritis clinic in Denver really seemed personable? Or maybe you are simply looking for a doctor who will listen to you and work with you to achieve disease remission? Well, you have come to the right place. UnabridgedMD has the best rheumatologist in Denver, Colorado and we cannot wait to work with you.Click here to get in touch: https://www.unabridgedmd.comOr give us a call: 303-731-4006If you live in Colorado and are looking for a rheumatologist to help you achieve disease remission, email or contact us at UnabridgedMD.com. We are the first direct care rheumatology in Colorado and can see you within a week!If you live in Colorado and are looking for a rheumatologist to help you achieve disease remission, email or contact us at UnabridgedMD.com. We are the first direct care rheumatology in Colorado and can see you within a week!If you live in Colorado and are looking for a rheumatologist to help you achieve disease remission, email or contact us at UnabridgedMD.com. We are the first direct care rheumatology in Colorado and can see you within a week!
In this episode, Katie reflects on the crucial role that parental and patient advocacy played in her her journey to a diagnosis of juvenile idiopathic arthritis (JIA). She also shares her college experience, and discusses the roles that comedy and humor have played in helping her cope. Cheryl and Katie express the importance of accepting the need for assistive devices, setting boundaries, believing in oneself, prioritizing needs, and having a support system to thrive with chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!Episode at a glance:Kate's Diagnosis Story at age 15: Katie shares her journey of being an active child and being diagnosed juvenile rheumatoid arthritis (juvenile idiopathic arthritis) at age 15 after experiencing symptoms for an extended period of time that were initially dismissed as “growing pains”.Advocacy: Katie emphasizes the crucial role her mother played in advocating for her during medical appointments, highlighting the importance of having a supportive network. Katie shares advice on self-advocacy, encouraging patients to set firm boundaries and prioritize their needs, even if it means challenging expectations.Support: The conversation emphasizes community and connection, and the benefit of having someone in your corner to help advocate with you.Coping Strategies: Practical tips are shared, including the use of specialized tools and gadgets designed to make daily tasks easier for individuals with arthritis. Katie also shares her experience with medical marijuana.Comedy: Katie shares the importance of comedy in her life, and how it helps her cope with her diagnosis and spread awareness of it.Accommodations: Katie and Cheryl discuss access to accommodations, particularly in educational settings, such as extended test time and speech-to-text tools for students with chronic illnesses.Living Authentically: Katie advocates for a balanced approach of embracing realism while maintaining a positive outlook, acknowledging both the challenges and opportunities for growth that come with chronic illness.Advice to Newly Diagnosed Patients: Carry on, stick up for yourself, and believe in yourself. Write down three things that made you proud each day.For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
Cheryl, Dr. Yu and Dr. Feldman share their patient experiences and exploring problems with current healthcare systems. They then share how these problems led them to form creative patient programs and services. Cheryl shares the origin story for her Rheum to THRIVE program, and Dr. Yu and Dr. Feldman share how they created Rheumission, a virtual first integrative Rheumatology and Lifestyle clinic for people living with autoimmune disease. Overall, our passion for reimagining autoimmune care shines through as we highlight gaps in current treatment paradigms, and outline visions for a more inclusive, holistic and effective healthcare model that is proactive versus reactive. The discussion concludes with an exploration of cutting-edge advancements in telemedicine and personalized medicine, and all speakers share their best advice for newly diagnosed patients. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Episode at a Glance:Importance of personalized care: we discuss the importance of personalized treatment plans tailored to individual needs, rather than one size fits all solutions.Revolutionizing autoimmune care: we explore the potential positive impact of integrating biotech, digital health, and virtual-first approaches to enhance research, diagnostics, and treatment, with Rheumission as an example.Multidisciplinary approach: we highlight the importance of team-based care in rheumatology and autoimmune care, where you can see not only a rheumatologist and rheumatology nurse but also get care from a multidisciplinary team (including registered dietitians, mental health therapists, physical and occupational therapists, etc).Taking a holistic approach: we explore the interconnectedness of physical and mental health, addressing lifestyle factors, stress management, and environmental influences.Exploring Mental Health: The conversation highlights the well-documented correlation between autoimmune diseases and mental health issues like anxiety and depression.Why is accessibility important: we discuss the problem of long waiting times for rheumatology appointments and possible solutions.Advocacy for patient involvement: Dr. Bonnie emphasizes the importance of empowering patients to take charge of their health and actively participate in decision-making processes.For full episode details:Go to the episode page on the Arthritis Life website for full show notes plus a full transcript, video and more!
This week, Dr. Hausmann takes on Ultrasound in Rheumatology, exploring its use in the field and diagnosing diseases such as Inflammatory Arthritis, Crystaline Arthropathy and Vasculitis. Dr. Minna Kohler, Founder and Director of the Musculoskeletal Ultrasound Program at Massachusetts General Hospital, joins us as our guest. Dr. Kohler discusses how Ultrasound can help therapeutically, what it's like working in an MSK Ultrasound clinic, plus how one can become trained in the use of Ultrasound, what the patient experience is like, the controversies surrounding the use of Ultrasound in rheumatology and what the future holds for it in our field.
On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain. Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in navigating emotions and thoughts, as well as acceptance. They also emphasize seeking support while navigating the challenges of chronic illness. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details plus a full transcript and video:See the episode page on the Arthritis Life website.
Trigger warning: orthorexia / eating disorders; fear of foodsIn Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family. Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive community online. He also explains the importance of advocating for oneself and seeking out reliable information and resources, taking a proactive approach to managing his conditions, and finding the right balance between pushing through pain and listening to his body's needs.Episode at a glance:Diagnosis Story: Ray describes his diagnoses and experience living with rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA).Navigating Multiple Conditions: Ray explains the complexities of living with multiple chronic illnesses, including challenges related to symptom management, accessing healthcare, and adjusting to lifestyle changes.Social Support and Connection: Cheryl and Ray discuss the significance of social support networks, in providing connection and understanding for individuals living with rheumatic diseases.Self-Advocacy and Empowerment: Ray emphasizes the importance of self-advocacy and seeking out reliable information and resources to empower oneself in managing chronic illnessesAcceptance and Resilience: Ray shares insights into his journey from feelings of denial to acceptance and living a fulfilling life despite health challenges.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript & video:Go to the episode page (coming soon) on the Arthritis Life website.
Cheryl and Rebecca also share misconceptions and talk about the variability and fluctuations of symptoms, as well as reframing limitations and embracing flexibility. They explore the idea of living a "good life" with rheumatic diseases, acknowledging the challenges while emphasizing the possibility of thriving and pursuing one's dreams despite the condition.Episode at a glance:Advocacy and Awareness: Cheryl and Rebecca emphasize the importance of advocating for individuals with juvenile idiopathic arthritis (JIA) and raising awareness about the condition to combat misconceptions and promote understanding in various settings.What happens when kids with JIA become adults? Rebecca clarifies common misconceptions such as that kids “outgrow” JIA. As an adult living with JIA, she explains how the diagnosis follows you to adulthood because it's a different disease than adult rheumatoid arthritis.Education and Work Accommodations: Cheryl & Rebecca discuss the need for accommodations, highlighting the importance of communication with employers, teachers, and peers.Thriving with JIA: The conversation delves into the idea of living a fulfilling life despite the challenges of rheumatic diseases, emphasizing the importance of reframing limitations, embracing flexibility, and celebrating achievements and everyday joys.Coping tools: Cheryl and Rebecca discuss the challenges faced by individuals and families dealing with JIA, as well as strategies for navigating life with chronic illness, including seeking support, staying informed, and fostering a positive mindset.Favorite mantras: “It's never too late to be who you might have been”, and it “always seems impossible until it's done”.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a video & transcriptComing soon on the Arthritis Life Website.
Rosemary also shares her experience with a mystery skin rash that ended up being a rare psoriatic arthritis medication side effect: leukocytoclastic vasculitis triggered by drug-induced lupus, and an eventual diagnosis of Palisaded Neutrophilic and Granulomatous Dermatitis. Throughout the episode, Rosemary and Cheryl discuss the importance of coping skills for difficult medical experiences. They also emphasize the importance of finding the right medications, lifestyle strategies, and the role of psychosocial support. Uncertainty and setbacks can be overwhelming, but self-compassion, support systems, acceptance, and perseverance can help you pursue a fulfilling life despite health challenges.Episode at a glance:Chronic Illness Journey: The interview delves into Emily's journey of living with chronic illnesses, from psoriatic arthritis, to developing drug-induced lupus which triggered leukocytoclastic vasculitis, and eventually being diagnosed with Palisaded Neutrophilic and Granulomatous Dermatitis (PNGD).Medication Management: Rosemary shares her experiences with various medications, including Enbrel, Humira, and Plaquenil, discussing their effectiveness in managing her symptoms and the decision-making process involved in discontinuing certain medications. They discuss the importance in recognizing adverse effects, while balancing this understanding with the benefits that medications do provide.Lifestyle strategies: Rosemary emphasizes the importance of physical activity and wellness in her life, despite her health challenges.Emotional Resilience: Navigating the emotional highs and lows with chronic illness can be overwhelming, from the initial relief of finding treatments to the grief and uncertainty of adjusting plans. Cheryl and Rosemary discuss self-advocacy, and pursuing fulfilling lives despite obstacles .Adapting to Change: Rosemary and Cheryl discuss how to adapt to change, both in terms of treatment plans and mindset towards living with chronic illness, including exploring alternative treatments and embracing new perspectives.Support: Rosemary reflects on the role of support from healthcare providers, online support groups, and in personal relationships - underscoring the importance of having a strong network when facing chronic illness.Advice to Newly Diagnosed Patients: “You don't have control of the fact that that happened to you, and you didn't do anything wrong. All you can do now is choose how to react to it. Do the next right thing. Little by little by little, it'll start coming together. And you're going to be okay.”Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcriptGo to the episode page on the Arthritis Life Website (transcript coming soon!).
Cheryl and Dr. Kimberly discuss the importance of pain science education to help patients better understand and manage their pain perception. The also explore the importance of building a network of health professionals and support groups to empower patients to advocate for themselves and navigate their treatment journey effectively. They conclude by discussing how to accept limitations while finding joy and adapting to new activities.Episode at a glance:Building Support Networks: Cheryl and Dr. Kimberly discuss the significance of building support networks, including health professionals, support groups, and reliable online resources to empower patients to advocate for themselves and navigate their treatment journey effectively.Pain Perception: They explore the complexities of interpreting pain signals, and discuss strategies for managing pain perception through education and awareness.Practical tips for Exercise for rheumatic disease: They share exercise tips, including to start slow, give yourself time to adjust, consider the pillars of physical activity, and try to be consistent. Some types of exercise to consider are aquatic exercise, hand exercise, or individually prescribed exercise from a physical therapist who understands your specific needs.Which lifestyle interventions have the most scientific evidence: They discuss the 2022 ACR Integrative Guidelines for RA and how lifestyle interventions such as physical activity, nutrition, sleep, and stress management can help reduce arthritis pain and fatigue.Acceptance and Adaptation: They address the importance of accepting limitations while finding joy and fulfillment in adapting to new activities and experiences, encouraging patients to focus on what is still possible despite challenges.Individual needs: They highlight the need for patients to understand their own bodies' rhythms and balancing interventions based on their unique needs.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a transcript:Go to the episode page on the Arthritis Life Website.
Episode at a glance:For full episode show notes go to the episode page here.Diagnosis story: Julia went from having a very active lifestyle, to becoming waking up with pain, fatigue, fever, and other symptoms. After initially thinking her symptoms were from a virus or pushing herself too hard in dance, she received a diagnosis of rheumatoid arthritis.Creative Pursuits: Julia expresses joy in dancing, theater, and writing - She shares coping strategies such as planning ahead, giving herself permission to rest and take breaks, social support, and finding positivity through her passions. In addition to her published writing, she is currently working on a novel.Resilience and Adaptability: The conversation delves into Julia's experiences as an actress, emphasizing the resilience and the ability to adapt to challenges in artistic pursuits.Self-Awareness: Julia encourages listeners to take some time to know themselves and advocate for their feelings. She shares “don't be afraid to say no”, and honor what you're feeling each day.Living in the Moment: Thriving with rheumatic disease includes being mindful of the present moment, honoring oneself, and finding joy despite the challenges.Advice to newly diagnosed patients: Be patient with yourself. Understand how your condition works in your body, and be kind to yourself.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For Full Episode Show Notes + TranscriptGo to the episode page here.
According to the Arthritis Foundation, about two-thirds of people with rheumatoid arthritis are overweight or obese—the same proportion as in the general population. However, when you have rheumatoid arthritis, extra body fat can create additional problems. In this episode, Dr. Isabelle Amigues, a board-certified rheumatologist, shares her expertise and holistic approach to arthritis. She explains that inflammatory arthritis is distinguished by joint pain and inflammation, with factors that set it apart from mechanical joint pain. Additionally, she discusses the correlation between being overweight or having excess adipose tissue and an increased risk of developing conditions such as rheumatoid arthritis and psoriatic arthritis. Moreover, she also highlights that shedding weight can enhance symptoms in patients with these conditions. Dr. Amigues emphasizes holistic approaches to managing inflammatory arthritis, advocating for practices such as adopting an anti-inflammatory diet like the Mediterranean diet and cultivating mindful eating habits. Ready to gain insights into managing inflammatory arthritis and adopting a holistic approach to health? Join us in this informative episode with Dr. Isabelle Amigues. Tune in now! Episode Highlights: Dr. Isabelle Amigues passion for research and holistic approaches to rheumatology About inflammatory arthritis The connection between weight and inflammatory arthritis Strategies that she give to her patients who have inflammatory arthritis Final advice or words of wisdom she want to share Connect with Dr. Isabelle Amigues: Website | www.unabridgedmd.com Facebook | facebook.com/unabridgedMD Instagram | @unabridgedmd Linked In | www.linkedin.com/in/isabelle-amigues Twitter | @unabridgedMD Youtube | www.youtube.com/channe About Dr. Isabelle Amigues Dr. Isabelle Amigues who is a board certified rheumatologist in Denver, CO. She practices a highly research-driven approach to her hematology practice. She is Colorado's Premier Physician-Scientist & Rheumatology Specialist. Studying rheumatology in both France and the United States has given her unrivaled clinical expertise and a highly research-driven approach to her rheumatology practice. With an emphasis on holistic healing, and as a stage IV cancer survivor who benefited from this uniquely blended approach to treatment, I utilize both Western and Eastern healing into her practice to help my patients restore balance and reach full remission. Resources: FREE! Discover the 5 Reasons Your Weight-Loss Journey Has Gotten Derailed (And How To Get Back On Track!)
This is a follow up to episode 45: “What's it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?” Paulina, Jenny, Ali, and Ananthi share what's changed and what has stayed the same with their medications, including whether they're still on methotrexate. They also reflect on how they've navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences.Paulina, Jenny, Ali, and Ananthi each share wisdom that has guided them along this nonlinear journey; encouraging self-care, advocating, celebrating small victories, and approaching life one day at a time. They conclude with a discussion about how to balance acceptance and adapting with a “fixing” mindset.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video:Go to the episode page on the Arthritis Life website.
Summary:Chery and Laura discuss the importance of connecting with others in the autoimmune community to create a sense of belonging and empowerment.They delve into the diverse offerings at the Autoimmune Association's upcoming event: the Autoimmune Community Summit. This includes sessions on managing pain and fatigue, communicating with healthcare teams, and exploring dietary strategies, all aimed at empowering patients with autoimmune conditions. Throughout their conversation, Cheryl and Laura underscore the pivotal role of community and empowerment in thriving with autoimmune diseases, making it clear that the Autoimmune Association's annual summit is a place where patients can find connection, knowledge, empowerment and support on their autoimmune journey.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including transcript & VideoGo to the episode page on the Arthritis Life Website.
Episode at a glance:Navigating Diagnosis and Treatment: Stella shares her journey of being diagnosed with axial spondyloarthritis at a young age and the challenges of finding effective treatments. Cheryl emphasizes the importance of advocating for oneself and seeking alternatives if a treatment is not the right fit.Using Mobility Aids and Devices: Stella and Cheryl discuss the use of mobility aids to help manage the impact that symptoms have on daily life. Stella highlights how using a cane helped her receive better care and awareness, while Cheryl mentions the benefit of finding tools that reduce the impact on joints and make tasks easier.Reclaiming Identity and Self-Expression: Personalizing mobility aids and turning them into accessories can help them feel more comfortable and reduce the stigma associated with them.Internalized Ableism: Their conversation brings up the topic of internalized ableism and emphasizes the importance of challenging these perceptions.Self-Advocacy and Communication: Stella and Cheryl discuss the necessity for advocacy when interacting with healthcare professionals. They encourage being thorough about symptoms, side effects, and concerns. Additionally, they recommend taking notes, bringing a friend or support person, and having a list of questions ready during appointments.Knowing Your Rights and Accommodations: Stella talks about obtaining a letter from her doctor to protect her rights in the workplace. Knowing legal protections for people with disabilities can be essential in navigating work environments and seeking proper accommodations.Finding joy despite limitations: Despite the challenges of chronic illness, Stella and Cheryl emphasize the importance of seeking joy, pursuing passions, and participating in activities that bring happiness, including using adaptations and coping strategies when needed.Community and Support: Stella and Cheryl discuss the value of being involved in a supportive community, such as Rheum to THRIVE where individuals with chronic illnesses can share experiences, insights, and mutual understanding.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For full episode details including a transcript and video:See the episode page on the Arthritis Life website.
Episode Summary:This includes a discussion about the profound confusion we all experienced when I went from a healthy, robust student athlete to having a “mystery illness” that doctors keep insinuating is “just anxiety” (or an eating disorder). We also share how we lost faith and trust in some doctors after experiencing medical gaslighting, yet we also found hope in the competency and empathetic care of other doctors (particularly in rheumatology). We share our mixed reactions to the diagnosis of rheumatoid arthritis (partly due to not understanding the severity of the condition), and my parents open up about what it's like to have a child get sick who's a young adult who's not a kid anymore but not a fully independent adult.My parents also share their advice to other parents of children or young adults who are sick but not yet diagnosed, as well as their best advice for newly diagnosed people with rheumatic diseases. This is a must listen!Episode at a glance:Introduction to my parents and discussion about my early life (healthy, active lifestyle, no drugs or risky behaviors).Cheryl's Early diagnosis story (2001-3): Going down the gastroenterology path. We initially addressed systemic symptoms (stomach issues, eye issues and fatigue). The gastroenterologist did many procedures (including an endoscopy, barium swallow and pH manometry) then said nothing was wrong other than “the relationship between mom and daughter” (insinuating we were too close or perhaps both “too anxious”). He then did a gastric emptying scan and diagnosed me with gastroparesis (slow motility - a form of dysautonomia) but still said nothing else was wrong.Medical Gaslighting: My parents dilemma of whether to believe me or the gastroenterologist and others who accused me of having “nothing wrong” and just being a hypochondriac: how they chose to believe me despite the medical gaslighting from docs; how it was confusing that i could just get sick out of seemingly nowhere, it just didn't make sense. My dad knew I didn't have an eating disorder.2003: Hiring a concierge doctor who initially thought it was just anxiety, but eventually in summer 2003 once my joints were hurting more she ran more bloodwork and preliminarily diagnosed me with RA.Immediately after diagnosis - memories of the first trip to the rheumatologist and starting meds: relief, confusion, a whiplash from feeling not believed to feeling believed and that this is very serious; discussions about whether to start medications or not; my mom opened up about realizing she could advocate for me but wasn't the expert in the medications;Cheryl returns to New York for final year of undergrad and experiences medicated remission for 6 years - end of “phase 1” of her RA journey, which became more bumpy and complex after that first remission ended.My parents advice to others: My parents share their best advice to other parents who may be in the position of advocating for their childrenMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!Full episode details including video and transcriptGo to the Arthritis Life Website for full episode details.
Cheryl C. and Cheryl K. share key tools for thriving with arthritis, like finding ways to ask for help, developing health literacy, practicing self-compassion, and getting support. They also discuss the safety of modern medicine and how to balance it with complementary therapies to create an individualized plan for managing rheumatoid arthritis. Additionally, they delve into the mental health techniques that have helped them cope, including: reframing exercises, and working past bias. Cheryl K. shared how she used her experiences to form Arthritis Consumer Experts, a patient-led and science-based organization with the goal of providing better education to people with arthritis.Episode at a glance:Navigating chronic illness when the internet was just starting: Cheryl Koehn had an athletic background, but when symptoms struck she went to the library to do her own research and advocated for herself despite medical gaslighting.Trialing treatment options: Cheryl K. initially denied Western Medicine before she ended up with 36 active swollen joints within a year and progressively worsening quality of life. Following this, she received gold injections and other conventional DMARDs initially, adding in Methotrexate and later transitioning to newer medications like biologics as they became available.Coping with peer pressure: People trying to convince her that “natural is better” and to avoid medications, however natural isn't inherently better at controlling disease and newer medications are backed by research. Cheryl C. and Cheryl K. discuss how a balance of complementary therapies and medication help people safely manage their conditions. Koen practices reframing exercises, works on explicit and implicit bias, and considers “what can I learn from this person today” with an open mind.Wisdom for newly diagnosed patients: Find ways to ask for help! Develop health literacy as a tool for advocating for yourself and to guide decision making.What does it mean to thrive with rheumatic disease: Practice self-love and self-compassion, love what you do, and give yourself room to breathe.Arthritis Consumer Experts (ACE): Cheryl K. used her experiences of running her own consulting firm, volunteering, and being on the board at the Arthritis Society to form this organization. Her goal is to provide better education to people with arthritis, and to not be the only person with arthritis with a say in arthritis organizations.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For Full Episode Details Including Transcript:Go to the Arthritis Life website
Clare and Cheryl share tips for how to cope with periods of no diagnosis or changing diagnosis. Clare also provides insights from her unique perspective as someone diagnosed with autism as an adult, soon after her myofascial pain syndrome diagnosis.Cheryl and Clare discuss the importance of perseverance in seeking help, building a personalized treatment plan, and ways to find joy in the midst of chronic illness while accepting that it's okay to feel sad or angry too. The episode concludes with a discussion about how pain, brain fog, anxiety, and burnout are hard, but support is out there and can make a big difference in living well despite the challenges.Episode at a glance:Journey to diagnosis of myofascial pain syndrome and autism: getting referred to a variety of specialists to troubleshoot symptoms that mimic other conditions, learning to unmask and cope with pain, brain fog, anxiety, and burnoutBuilding a personalized treatment toolbox: currently incorporating pharmaceutical medication with integrative treatment. Physical therapy and exercise with gentle movement, yoga, and weight training, Cymbalta for depression and chronic painFinding joy: Find a community where you can learn new things and have compassionate and caring support. Don't forget to find joy in the “little things”, like cozy blankets or a TV show / movie / book to escape to.Advice for undiagnosed patients: You're not crazy! The gray area is scary, but it won't last forever. Keep an open mind, and know it's okay to feel sad and angry. Coping with a change in diagnosis: Clare's tips from her experience having her diagnosis changed: being open to new possibilities, advocating for yourself, and being realistic about what doctors knowLiving well despite chronic illness: Getting to a place where you're friends with your body - not fighting against it but rather acknowledging what your body has survived. Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course & support group program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!For full episode Details, Links, Video & TranscriptionGo to the Arthritis Life Website: www.MyArthritisLife.Net (episode page coming soon!)
Dating. It's a weighted word that triggers eye rolls and a slew of other emotions and emotive responses. While it's not for the faint of heart, the heart is the very reason why we put ourselves out there and through the dating gauntlet. Dating with a chronic condition like arthritis creates its own level of trials — both physical and emotional. In this episode, our experts candidly discuss what it's really like to date with arthritis and explore the challenges, the highs and lows, how to make it safe and potentially less painful … and everything in between. *Visit the Live Yes! With Arthritis Podcast episode page get show notes, additional resources and read the full transcript: https://www.arthritis.org/liveyes/podcast/new-podcast/ep-73-dating-with-arthritis * We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guests: Alexa Child, Jacqueline Child, and Sadiq Jiwa.
Often when we talk about forming new habits it's January when we are all fired up and raring to go in the New Year. But February often brings with it a slump - new habits start to wane so what better time to revisit this than now? In today's podcast we talk to Ros Fielden, a health coach about her health journey and how to build sustainable habits.I retrained as a Health Coach in 2018 following my own Health Journey. I was diagnosed with Inflammatory Arthritis in February 2016 and discovered that by changing my lifestyle I was able to influence how my body functions. I initially saw a Rheumatologist who put me on strong medications to control the inflammation with very unpleasant side effects, but I subsequently learnt that how I treat my body also influences how my body works and that I could tackle reducing inflammation by looking at my lifestyle choices. I changed my diet and my lifestyle with incredible results, I feel very grateful to have been able to come off all the medications. I subsequently became a Health Coach as it felt super important for me to share the message that we do have the opportunity to improve our own health and have a sense of agency over our own bodies. We can declutter those unhealthy habits that are not serving us well so that we can be as healthy as possible and live life to the full! Ros's Facebook page @healthcoachingwithros on Instagram Ros's Website About the Declutter Hub Podcast We're Ingrid and Lesley and are super excited you're here!If you're sick to the back teeth of clutter dictating your home life then we are here to help you get control back and spend your valuable time doing the things you want and not shuffling piles of stuff around 24/7.We have been decluttering and organising homes face to face and online for over 24 years together and have helped thousands of members and clients to regain the home of their dreams. We have a passion for people, practicality, and piles of paper and love nothing better than to carve out solutions for anyone overwhelmed with clutter. If that's you, you're in the right place.Our podcast is packed with actionable tips, inspiration and motivation to get your decluttering done. We believe decluttering is all about emotions first, stuff second.Tune in, subscribe and enjoy! New episodes every Friday.Get in touchWe'd love to hear from you. We have so many ways that you can reach out to us to say hello.Our Free Facebook Group - The Declutter Hub Community - emotions based declutteringInstagram - @declutterhubWebsite - Declutterhub.comOur Membership - members.declutterhub.comEmail - support@declutterhub.comDonate & Support the PodcastWe have set ourselves up on Buy Me A Coffee, meaning that if you enjoy the podcast and our episodes you can give us a one-off donation to support us. We are totally committed to our free weekly content but if you would like to show us some love, that would be most appreciated.Buy Me A CoffeeCan you spare 5 minutes of your day to leave us a review? Your reviews mean the...
We all know that staying physically active is one of the best things you can do for your arthritis and overall health. But let's be honest, staying active when pain is persistent is hard, and at times, may feel impossible. The research and recommendations for the benefits of physical activity are well documented. The CDC recommends adults with chronic health conditions and disabilities get at least 150 minutes of moderate-intensity aerobic physical activity a week and at least two days a week of muscle-strengthening activities. But what does that mean exactly? And what does that look like? And what if you can't meet those guidelines? In this episode, our experts we'll answer those and many more questions about physical activity and arthritis and the importance of starting where you are. *Visit the Live Yes! With Arthritis Podcast episode page get show notes, additional resources and read the full transcript: https://arthritis.org/liveyes/podcast/new-podcast/ep-72-physical-activity-start-where-you-are * We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Kirsten Ambrose, MS.
Arthritis can affect anyone — even children. Hear real talk about juvenile arthritis from those who have lived with it and how they adapted and overcame obstacles to thrive with JA. *Visit the Live Yes! With Arthritis Podcast episode page get show notes, additional resources and read the full transcript: https://www.arthritis.org/liveyes/podcast/new-podcast/ep71-arthritis-is-ageless * We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guests: Beka Nicola and Bri Ramos.
Yoga therapist and researcher Dr. Steffany Moonaz and host Cheryl Crow discuss the many benefits of yoga for people with inflammatory arthritis. They also bust common myths and misconceptions about yoga, including that it's just an exercise or series of physical poses. Dr. Moonaz shares her best tips for patients newly diagnosed with arthritis and explains how the philosophy of yoga can help people with arthritis fully embrace the present moment and improve overall wellbeing. Dr. Moonaz is the founder of Yoga for Arthritis, which aims to bring evidence-informed and heart-centered yoga practices to people living with arthritis and chronic pain worldwide. Episode at a glance:Yoga meaning and philosophy: The union of mind and body through movement, breath, and mindfulness - not just poses and exercise!What makes Yoga Therapists different than Yoga Teachers: Yoga therapists have further training in understanding of health conditions to help patients manage chronic illness or imbalances through yoga.The power of movement for mental health: After experiencing improvements in her own mental health through dance and exercise, Dr. Moonaz realized her purpose of reducing suffering for people through mindful movement. She focuses on arthritis due in part to it being a leading cause of disability.Research on Yoga for Arthritis: It is considered integrative medicine with improvements for overall quality of life. This is due to relief of pain and stiffness, increase in physical function through balance, strength, and flexibility, and mindfulness for stress reductionBeginner Tips: Ask your rheumatologist if there are positions you should avoid, search for a Yoga Therapist who has experience with accessible / adaptive yoga through the International Association of Yoga Therapists, private lessons can be beneficial for added safety and personalized / targeted symptom managementAdvice for newly diagnosed patients: find “RA Thrivers” and listen to their stories, use social media as a resource for building connections, and join Rheum to THRIVE for education and support!Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in 2023!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Full show notes including transcript and videoGo to www.MyArthritisLife.Net to the show page, which should be up soon!
2022 was an eventful year. In this episode, our host, Rebecca, takes a look back at the most memorable moments from the past year's top podcasts on subjects such as mental health, fatigue and sleep, sex and intimacy, pain management, grief and more. *Visit the Live Yes! With Arthritis Podcast episode page get show notes and read the full transcript: https://www.arthritis.org/liveyes/podcast/new-podcast/ep70-2022-highlights * We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guests: Dan Cushman, MD, Daniel Clauw, MD, David Kessler, Dr. Hayes Wilson, Dr. Mike Saag, Dr. Susan Bartlett, Jacques Dallaire, John (Drew) Sturgeon, and Rachel Aaron, PhD, MA.
Leading experts in rheumatology from all over the world convened at the American College of Rheumatology annual scientific meeting, ACR Convergence. In this episode, Rebecca talks to some of the rheumatologists and scientists about their work and presentations, and to other patients who participated. Hear about some of the research, treatments and trends that have emerged in the past year. *Visit the Live Yes! With Arthritis Podcast episode page get show notes and read the full transcript: https://www.arthritis.org/liveyes/podcast/new-podcast/ep69-2022-arthritis-research-highlights * We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guests: Cheryl Crow, MOT, OTR/L, Daniel H. Solomon, MD, MPH, David T. Felson, MD, MPH, Jean Liew, MD, MS, and Megan E.B. Clowse, MD, MPH.
Access will soon expand for new biologic treatments for inflammatory arthritis called biosimilars. Learn what they are, what to expect when taking one, including safety and effectiveness, and how determine if they are right for you. Visit the Live Yes! With Arthritis Podcast episode page get show notes and read the full transcript: https://www.arthritis.org/liveyes/podcast/new-podcast/ep68-biosimilars-101-inflammatory-arthritis We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Mark S. Box, MD, FACR, FACP.
ACR22 Daily Recap: Saturday Recap JAK vs TNF inhibitor Infections in RA Opioid and Neuropathic Use After Initiating btsDMARDs in RA Pre-RA Pharmacological Interventions: Delaying is not Enough PreRA to Treat or Not! Prescribing Methotrexate in Post-Roe Era The Great Debate: To Treat or Not to Treat Pre RA To Switch or Not: Biosimilars in Inflammatory Arthritis
Being overweight can make arthritis worse — and not just because every extra pound adds four pounds of force on joints. Fat is an active tissue that drives inflammation. In this episode, a scientist discusses her research into the role of fat, how it seems to affect cartilage and how it might be linked to osteoarthritis. She also offers some tips for achieving a healthier weight. Visit the Live Yes! With Arthritis Podcast site to read the blog, get show notes and a full transcript: https://arthritis.org/liveyes/podcast We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Dr. Kelsey Collins.
We are delighted to be joined once again by Dr Ameen Jubber, Consultant Rheumatologist at Leicester. Dr Jubber is going to discuss early inflammatory arthritis in general and give us a rheumatoid arthritis refresher in particular.
Movement is medicine when it comes to arthritis pain, but what if it hurts just to get moving? In this episode, you'll hear how a physical therapist can help you learn to move with less pain. An expert will also discuss PT techniques to ease pain without drugs. Visit the Live Yes! With Arthritis Podcast site to read the blog, get show notes and a full transcript: https://arthritis.org/liveyes/podcast We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Rev. Dr. Teoma Loeb.
Research has revealed that physical activity and staying active plays a key role to managing arthritis and its symptoms — including reduced pain, increased strength, flexibility and range of motion, as well as overall better health and mood. In this episode of the Arthritis Foundation's Live Yes! With Arthritis Podcast, we'll dive into the science of how movement is beneficial for the joints and overall health and well-being. As part of their support of the Arthritis Foundation, this episode was brought to you in part by TYLENOL. Visit the Live Yes! With Arthritis Podcast site to read the blog, get show notes and a full transcript: https://arthritis.org/liveyes/podcast We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Alan H. Beyer, MD, FACS .
In this episode, seasoned patient and registered nurse (RN) Jan Hempstead shares her best tips for managing stress and living a fulfilling life with multiple comorbidities. Jan lives with rheumatoid arthritis (RA), Ehlers-Danlos Syndrome Hypermobile type (EDS), hereditary alpha-tryptasemia (HAT), Dysautonomia, and more. This includes discussions about the importance of support (including Cheryl's Rheum to THRIVE program) and mindfulness, meditation and Stoic Philosophy in Jan's journey.Episode at a glance:Diagnosis story: Jan shares how her rheumatoid arthritis diagnosis was very difficult due to her comorbid conditions: EDS Ehler-s danlos syndrome, dysautonomia, and hereditary alpha-tryptasemia (HAT)Best tools in Jan's toolbox for RA and EDSBiggest challenges with Managing multiple comorbiditiesWhat helps Jan cope with managing multiple conditionsImportance of community and support groupsRapid fire questions (lightning round)Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the next group today!Full Episode DetailsSee full details including a transcript at www.MyArthritisLife.Net
Not all pain is the same. In fact, there are several different types of pain that can affect us differently — physically, emotionally, mentally. Knowing which type of pain you're experiencing is the key to effectively treating the pain. For Pain Awareness Month this September, we're featuring a two-part series podcast on pain in which we first explored the different types of pain people with arthritis may experience. In this, the second part of the series, we hear from a psychologist who specializes in pain about the brain's role in pain and some strategies to reduce and control it. We also are joined by a rheumatologist who discusses some medications and practices you can keep in your toolbox to manage the type of pain you may be experiencing. Visit the Live Yes! With Arthritis Podcast site to read the blog, get show notes and a full transcript: https://arthritis.org/liveyes/podcast We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guests: Dr. John Davis and John (Drew) Sturgeon.
In this episode, Kate shares her journey getting diagnosed with psoriatic arthritis while working as a chef in London. She opens up about her post-diagnosis emotional roller coaster and shares how joining Cheryl's Rheum to THRIVE online support and education program helped her feel more confident, empowered and supported. She also details other programs that helped her including a mindfulness course and CBT therapy. The episode ends with Kate sharing what it means to her to live a “good life” with rheumatic disease.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the next group today! Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full episode details and transcriptPlease go to the show page on www.MyArthritisLife.Net for full episode details including a transcript.
Not all pain is the same. In fact, there are several different types of pain that can affect us differently — physically, emotionally, mentally. Knowing your type of pain is the key to effectively treating it. This episode is the first of a two-part series for Pain Awareness Month in which you'll learn to identify your type of pain and potential causes. Listen now and stay tuned for part two in which we explore solutions to pain. Visit the Live Yes! With Arthritis Podcast site to read the blog, get show notes and a full transcript: https://arthritis.org/liveyes/podcast We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Dr. Daniel Clauw.
The average doctor's appointment is just 18 minutes, so effective communication is key to getting the care you need. Learn how to navigate common doctor-patient communication obstacles, including what both parties can do differently and better to improve care. Also, get tips on how bring up difficult topics with your doctor, like medication concerns and alternative therapies. Visit the Live Yes! With Arthritis Podcast site to read the blog, get show notes and a full transcript: https://arthritis.org/liveyes/podcast We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Dr. Hayes Wilson.
Cheryl reflects on a blog post she wrote at age thirty called: “Ten Years with Rheumatoid Arthritis: What's the Impact?” This includes a deep dive into the physical effects of rheumatoid arthritis, effects on my daily routines, as well as finances, social and emotional life, school, career, hobbies, travel and overall life philosophy. Cheryl shares how pregnancy and parenting changed her disease progression, and details how she coped with additional health issues and injuries in her thirties along with adjusting to her new role as a mother. For full show notes plus a transcript, go to the episode page on the Arthritis Life Website. Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group! Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Full Show Notes, Links & TranscriptFor full show notes plus a transcript, go to the episode page on the Arthritis Life Website.
This episode was originally released on June 2, 2020. In your journey of living with arthritis, your pain may get to a point when surgery becomes one of your treatment options to decrease pain, especially for those living with a degenerative form of arthritis like osteoarthritis. Weighing your options can be difficult and cause much anxiety. In this episode of the Live Yes! With Arthritis Podcast, orthopedic surgeon Dr. Alan Beyer, MD, discusses Arthritis Pain and Surgery, providing all the details you need to guide you. Visit the Live Yes! With Arthritis Podcast site to read the blog, get show notes and a full transcript: https://arthritis.org/liveyes/podcast We want to hear from you. Tell us what you think about the Live Yes! With Arthritis Podcast. Get started by emailing podcast@arthritis.org. Special Guest: Dr. Alan Beyer, MD.
Ali and Cheryl discuss how overwhelming medication changes can be, and Ali describes what it was like to switch doses of methotrexate, switch to a new biologic medication and add prednisone and NDSAIDs in the mix. Ali & Cheryl also discuss what it's like to have costochondritis and how they cope with unresolved health issues while still trying to live a full, joyful life. This episode also includes reflections about how to cope with social media jealousy within the chronic illness community, how to set boundaries with friends and loved ones during Covid times, and more. This interview was conducted in February 2022.Episode at a glance:Flare up leads to medication changes: Ali shares what it was like to switch biologics, take a course of prednisone and add in NSAID (Non steroidal anti inflammatory medications) and alter her methotrexate dosageHeartbreak: when Ali discovered she wasn't in medicated remission, she feels heartbrokenEmergency Room Visit: Ali goes to the emergency room with severe pelvic pain, doesn't get any clear answers, follows up with both Gynecology and GI doctorsCostochondritis and “hypochondriac” accusations: Cheryl & Ali discuss their experiences with costochondritis and how they were both accused of being hypochondriacs before their accurate diagnosis of costochondritisCoping: we discuss how we cope with the ups and downs of chronic illness lifeCovid and social life: discussion about how to set boundaries socially around covid precautionsSocial Media and Jealousy: reflections about how to cope when others seem to be doing better than youEveryone is different: there's no badge for managing RA a certain wayAli's advice to people just starting out on Methotrexate, or who are hesitant about itMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in October 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Episode SponsorsFor full episode details including a transcript, please go to the Arthritis Life Website at www.MyArthritisLife.Net
After 5 month without drugs, Phill is healthier than ever, he's back to work and able to play with his son thanks to the Paddison Program principles and his dedicated workout routines. For the transcription and for more helpful information visit http://www.rheumatoidsolutions.com Paddison Program for Rheumatoid Arthritis http://www.paddisonprogram.com/rheumatoid-arthritis Rheumatoid Support - http://www.rheumatoidsupport.com
People living with rheumatoid arthritis (RA) and related autoimmune forms of arthritis (such as psoriatic arthritis and ankylosing spondylitis) are at greater risk of developing hypermobility, Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Emily and Cheryl discuss ways for people living with arthritis and EDS or POTS to manage the day to day of their conditions and cope with the ups and downs and uncertainties that come with fluctuating chronic illnesses. They also discuss the role of occupational therapists in helping people with these conditions improve their self-management abilities and confidence in building a meaningful life despite health challenges.Episode at a glance:Emily's diagnosis story for EDS and POTS at age 14: joint pain, feeling like passing out, digestive symptoms and moreWhat is POTS?Autoimmune conditions, Covid-19 and POTS: Emily and Cheryl discuss the connections between these conditionsEDS and Hypermobility Spectrum Disorder and General hypermobility: Emily explains the difference between hypermobility and EDS (which includes one of 13 subtypes being hypermobile type)Who diagnoses EDS and POTS?Connection to arthritis: Emily and Cheryl review the data about the incidence of POTS and EDS amongst people with rheumatoid arthritis and other related conditionsTips for coping when you have both arthritis and EDS: the fluctuation and the uncertainty; whack a mole - live in the moment, acceptanceWhat's in Emily's toolbox for coping with POTS and EDS: sleep routines, hand splints, planning ahead, energy conservation and moreWhat is the occupational therapist's role in helping people manage dysautonomia and EDS? Sleep hygiene, energy conservation, fatigue management, pain tools, teaching strategies and moreSelf-Management for Chronic Conditions: Emily and Cheryl share insights into this often overlooked area of need for many patients.Emily's best advice for people newly diagnosed with EDS and/or POTSMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full Episode Show Notes & TranscriptFor full episode show notes, including links discussed in the episode and a full transcript, go to the show page on the Arthritis Life website: www.MyArthritisLife.Net
Imagine living life in constant physical pain, not knowing whether it will get better or worse the next day. Living with rheumatoid arthritis (RA) isn't always easy. Everyday chores can become a challenge as the disease progresses. Fortunately, there are various treatments and strategies to better manage the condition. Today's guest developed rheumatoid arthritis at age 31, becoming incapacitated by the disease. It was food poisoning that set him on a true healing journey. Clint Paddison is an Australian comedian, motivational coach, and health strategist with a science background and a giant dose of positive expectations. He was asked to give a TEDx talk on How To Reverse RA Naturally at Bond University, Queensland, Australia. He also spoke to over 200 naturopaths at the International Convention of Integrative Medicine to explain the connection between our digestive system and autoimmune diseases. What we discuss in this episode: - First, let's listen to an excerpt from Dotsie's book - Clint shares his battle with RA and how food poisoning led him to his healing journey - What you need to know about RA and its symptoms - The dilemma between taking a drug with adverse side effects and living in pain - Clint talks about gut health and autoimmune diseases - What steps can you take to lower inflammation? - Food and autoimmune disease - the effects of dairy and meat plus fat intake - How to exercise and move your body even when you are experiencing pain - The effects of Humira, Methotrexate, NSAIDS, and other drugs for RA - Book Recommendation - The Enzyme Factor by Dr. Hiromi Shinya - Watch Clint Paddison's TEDx Talk: https://paddisonprogram.com/clint-paddison-tedx-talk/ - Connect with Clint Paddison on Instagram and Facebook - Check out Clint Paddison's website - https://paddisonprogram.com/ - The Paddison Program For Rheumatoid Arthritis - https://paddisonprogram.com/rheumatoid-arthritis/ - Subscribe to The Rheumatoid Solutions Podcast - Use code SWITCH for 25% off your order at MaxinesHeavenly.com - Purality B12 Deal: http://puralityhealth.com/SWITCHb12 to buy one B12 and get one free plus 35% off the rest of Purality's products Connect with Switch4Good - YouTube - https://www.youtube.com/channel/UCQ2toqAmlQpwR1HDF_KKfGg - Facebook - https://www.facebook.com/Switch4Good/ - Instagram - https://www.instagram.com/switch4good/ - Twitter - https://twitter.com/Switch4GoodOrg - Website - https://switch4good.org/