Podcasts about Dermatomyositis

Good morning from Pharma Daily: the podcast that brings you the most important developments in the pharmaceutical and biotech world. Today, we delve into a fascinating array of stories that highlight the scientific advancements, regulatory updates, and strategic maneuvers shaping our industry.Let's begin with Biogen's efforts to breathe new life into its spinal muscular atrophy treatment, Spinraza. In response to declining sales, Biogen is launching a high-dose version in Japan, aiming to enhance therapeutic efficacy and regain market competitiveness. This move underscores the company's strategy to offset projected revenue declines by 2026. The decision to pursue this high-dose version reflects Biogen's commitment to maintaining its foothold in a challenging market landscape where innovation is key to survival.Shifting gears to regulatory news, the FDA, led by Commissioner Marty Makary, has taken a firm stance against the proliferation of illegal copycat drugs. This announcement comes on the heels of Hims & Hers' controversial introduction of a compounded version of Novo Nordisk's obesity drug, Wegovy. The FDA's commitment to protecting intellectual property and patient safety is crucial in an era where health tech firms increasingly challenge traditional pharmaceutical boundaries. Novo Nordisk's aggressive marketing strategy for Wegovy, including a high-profile Super Bowl advertisement, highlights the competitive pressures in this growing market segment and underscores the legal tensions between established pharma giants and emerging tech-driven companies.In an unexpected turn of events, BridgeBio faced a significant setback as Pfizer withdrew its tafamidis patent in Europe. This led to a notable drop in BridgeBio's stock price and raised concerns about earlier generic entries into the ATTR-CM market. Such developments signal potential shifts in market dynamics and pricing strategies that companies must navigate carefully.On the clinical front, Bayer's phase 3 study of asundexian has demonstrated remarkable results—a 26% reduction in stroke risk. This positions Bayer favorably against competitors Bristol Myers Squibb and Johnson & Johnson, setting a new benchmark in the high-stakes anticoagulant market. Innovation continues to be paramount as companies strive for superior clinical outcomes that can significantly impact patient care.Regulatory landscapes are evolving as well, with Gilead's Yescarta receiving clearance for expanded use. These milestones are crucial for broadening therapeutic indications and enhancing patient access, underscoring ongoing efforts to address unmet medical needs while sustaining growth trajectories.Meanwhile, Pfizer-backed Priovant has reported promising mid-stage results for brepocitinib in treating dermatomyositis and other rare skin conditions. As a TYK2/JAK1 inhibitor, brepocitinib exemplifies precision medicine's expanding role in addressing autoimmune disorders through targeted therapies.The IPO scene remains vibrant with Agomab Therapeutics and Spyglass Pharma making substantial entries into Nasdaq, collectively raising $350 million. This influx indicates continued investor confidence in biopharma innovation despite broader economic uncertainties—a testament to the sector's resilience and potential for groundbreaking advancements.Corporate dynamics are also shifting as seen with Moderna's Chief Medical Officer Jacqueline Miller stepping down after a brief tenure. Leadership changes such as these often signal strategic realignments within companies as they adapt to complex regulatory environments and competitive pressures.Summarizing these developments illustrates a dynamic landscape marked by scientific innovation, regulatory vigilance, and strategic marketing initiatives. As companies strive for competitive advantage through new drug formulations and market expansions, they must also navigate legal challenges and regSupport the show

Dermatomyositis is a rare multi-organ autoimmune condition that primarily affects the skin and muscles. It causes fatigue, muscle weakness, and painful skin rashes. Treatment for the condition has long centered on the use of chronic systemic steroids, which can carry long‑term toxicity. Priovant is developing brepocitinib, a dual TYK2/JAK1 inhibitor originally developed at Pfizer to treat the condition. We spoke to Ben Zimmer, CEO of Priovant, about the company's experimental targeted therapy to treat dermatomyositis, how its relationship with its parent Roivant frees it from reliance on the capital markets, and the broader potential of n the treatment.

Send us a textBen Zimmer is CEO of Priovant Therapeutics ( https://www.priovanttx.com/ ), a clinical-stage biotechnology company focused on delivering novel therapies for autoimmune diseases associated with the greatest morbidity and mortality. Priovant is developing oral brepocitinib, a potential first-in-class dual inhibitor of TYK2 and JAK1, across multiple severe autoimmune indications, unlocking new treatment options for patients who are underserved by existing therapies.Ben joined Priovant from Roivant, where he was a member of the founding team in early 2015 and held multiple leadership roles across the organization, including President, Roivant Health, Chief Operating Officer, and Head, Public Affairs. As President, Roivant Health, Ben led and oversaw the launch of Roivant's Chinese biopharmaceutical subsidiaries, healthcare technology companies (including Datavant), and computationally powered drug discovery platform (including VantAI). Earlier in his career, Ben was a consultant at McKinsey & Co and co-founded and led a public policy non-profit. He holds a BA magna cum laude from Harvard College and a JD from Yale Law School.#BenZimmer #PriovantTherapeutics #AutoimmuneDiseases #Brepocitinib #TYK2 #JAK1 #Dermatomyositis #NonInfectiousUveitis #Pfizer #Roivant #VivekRamaswamy #ProgressPotentialAndPossibilities #IraPastor #Podcast #Podcaster #STEM #Innovation #Technology #Science #ResearchSupport the show

On this episode of Walk and Roll Live – Disability Stories, we sit down with Jose “Junior” Dominguez, who was diagnosed at just five years old with dermatomyositis, a rare autoimmune disease that mostly affects older adults but can be especially dangerous in children. Now, 38 years later, Jose shares his journey of growing up with this condition, the challenges and victories along the way, and how love from his girlfriend, his daughters, and family has kept him going. This conversation is about resilience, family, and finding joy in the ups and downs of life. Jose's story is proof that even with rare conditions, people can live meaningful, love-filled, and empowered lives. Subscribe to Walk and Roll Live for more stories from the disability community. Walk and Roll Live 

In this episode, we're joined by myositis expert Dr. Brian Feldman to explore Juvenile Dermatomyositis (JDM). We cover its clinical presentation, key diagnostic clues, and the workup including labs and imaging. We examine the MDA5 variant, known triggers, and non-pharmacologic management strategies. Dr. Feldman also addresses the high-stakes scenario of JDM-associated rapidly progressive interstitial lung disease, offering insights into pathophysiology, imaging, and aggressive early treatment. The episode concludes with a look at the field's questions that remain. 

Riley details her complex and often delayed diagnostic journey, the challenges of navigating the healthcare system, and which treatments have worked best for her.  She also shares how she navigates daily life while living almost exclusively at home due to limited mobility and energy.Cheryl and Riley also discuss the adaptations and strategies Riley uses to manage her conditions and maintain her quality of life, including some special tips for RV living. Riley offers insights into finding peace in the moment, the importance of advocacy, and the reality of thriving in survival mode.  Riley challenges the traditional idea of what it means to thrive, redefining it as being present for micro-moments of connection, joy, or peace . Her story highlights both the physical toll of chronic illness and the emotional strength required to navigate a complex and often dismissive healthcare system.Episode at a glance:Riley's Diagnosis Journey:  Riley shares her journey with multiple autoimmune conditions, including lupus, rheumatoid arthritis, and Sjögren's syndrome.Treatment Trials and Tribulations: Riley opens up about experiences of medical gaslighting and the emotional toll of being dismissed by providers.The Importance of Advocacy and Self-Care: Riley and Cheryl discuss the power of symptom tracking as a tool for validation and self-advocacy in healthcare.Daily Life Adaptations when you Don't Leave Home Often: Riley shares her daily tools and strategies that work for her and her family.Finding Micro-Moments of Joy and Redefining Thriving: Riley redefines what it means to thrive—finding value in micro-moments of connection, joy, or stillness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Welcome back to our weekend Cabral HouseCall shows! This is where we answer our community's wellness, weight loss, and anti-aging questions to help people get back on track! Check out today's questions:    Kris: Hi, I was wondering if you would have any suggestions ,help or feed back on dermatomyositis/antisynthetase syndrome . My husband (Anthony) was recently diagnosed with it, and everything I read and hear it seems little scary. We see a functional medicine dr. now but she is waiting to see what a rheumatologist suggests. Both my husband and myself are thinking detoxing would be the first thing we should do. Would you have any suggestions or thought on how we deal and handle this? thank you in advance                                                                                                                                                    Frankie: Hi Stephen, hope your having a great day. I've been dealing with post-nasal drip for a while, and my ENT believes it's caused by acid. I'm 21 and was prescribed two doses of Pantoprazole 40mg and two doses of Ranitidine 150mg, but I stopped after a month because I was supposed to take them for three months, and I don't want to stay on them that long. I had asthma when I was younger, so I wonder if that could be a factor. At this point, I don't know what else to do to get rid of it. any advice?                                                                                                                                           Melissa: Hi Dr. Cabral, I took the food sensitivity test and the heavy metals test. On my food sensitivity test it showed Candida albicans and I had some heavy metals such as aluminum and mercury show up on my HM test. Do you recommend doing the detox before doing the CBO protocol or vice versa? If I could only do one, which one would you recommend? For the detox, would you recommend the heavy metals one or the general 7 days (I've never done a detox before). Also, would it be safe to start the estrogen balance and estrogen support supplements at the same time as starting a detox or CBO protocol? If I'm just trying help my body excrete estrogen would you recommend just the estrogen balance supplement? I don't make too much estrogen but it's high because my body isn't excreting it well. TY!!!                  Jill: Thank you Dr. Cabral for your honest and straight forward approach. I have the MTHFR gene and seek a daily vitamin with B vitamins & folate. Many products are available with the activated or methylated forms of folate, B6, and B12. However, when I take them I experience headaches, a feeling of overstimulation, and anxiousness. I spent months experimenting and broke down my multivitamin taking a complex without any B vitamins and then added in individual forms of non methylated folate and B vitamins. I had no issue when folate and B vitamins were methyl free such as folinic acid and the Hydroxocobalamin and Adenosylcobalamin forms of B12. Tell me I'm not crazy! Do you agree that some people may be sensitive to methylated nutrients? Would you consider making DNS with methyl free nutrients?                 Morgan: Hi Dr Cabral. I'm 34 years old and have recently been diagnosed with isolated high diastolic blood pressure (systolic is normal). I live a healthy lifestyle including daily exercise, balanced diet and maintain a healthy weight. I don't smoke or drink alcohol. I recently left a job causing me some stress but otherwise I live a pretty stress-free life and I also practice daily yoga and meditation. My mom was diagnosed with hypertension in her 20s and has been on medication since. My HCP suggested starting me on medication too. I feel very strongly about relying on a lifelong medication. My question is even though I do everything correct to prevent high blood pressure, is it possible that some things are just simply genetic? Any suggestions before trying medication? Anything helps! Thanks!     Thank you for tuning into today's Cabral HouseCall and be sure to check back tomorrow where we answer more of our community's questions!    - - - Show Notes and Resources: StephenCabral.com/3382 - - - Get a FREE Copy of Dr. Cabral's Book: The Rain Barrel Effect - - - Join the Community & Get Your Questions Answered: CabralSupportGroup.com - - - Dr. Cabral's Most Popular At-Home Lab Tests: > Complete Minerals & Metals Test (Test for mineral imbalances & heavy metal toxicity) - - - > Complete Candida, Metabolic & Vitamins Test (Test for 75 biomarkers including yeast & bacterial gut overgrowth, as well as vitamin levels) - - - > Complete Stress, Mood & Metabolism Test (Discover your complete thyroid, adrenal, hormone, vitamin D & insulin levels) - - - > Complete Food Sensitivity Test (Find out your hidden food sensitivities) - - - > Complete Omega-3 & Inflammation Test (Discover your levels of inflammation related to your omega-6 to omega-3 levels) - - - Get Your Question Answered On An Upcoming HouseCall: StephenCabral.com/askcabral - - - Would You Take 30 Seconds To Rate & Review The Cabral Concept? The best way to help me spread our mission of true natural health is to pass on the good word, and I read and appreciate every review!  

In this episode, we review the high-yield topic of⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠Polymyositis / Dermatomyositis⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the MSK section.Follow⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media:Facebook: www.facebook.com/medbulletsInstagram: www.instagram.com/medbulletsofficialTwitter: www.twitter.com/medbullets

Klinisch Relevant ist Dein Wissenspartner für das Gesundheitswesen. Drei mal pro Woche, nämlich dienstags, donnerstags und samstags, versorgen wir Dich mit unserem Podcast und liefern Dir Fachwissen für Deine klinische Praxis. Weitere Infos findest Du unter https://klinisch-relevant.de

QD clinics - lessons from the Clinic brought to you by RheumNow Live 2025 QD 269 CREST or More? https://youtu.be/GSBfr2S9iL4 Is this CREST or Diffuse PSS? Features Dr. Jack Cush.  QD270 Acute Neck & Back Pain https://youtu.be/qWTGvqL9-wY Acute onset febrile, polyarthritis, neck and low back pain Features Dr. Jack Cush.  QD271 - Treating Overlap with ILD https://youtu.be/eR7O-oy_O_g Polyarthritis, ILD, Dermatomyositis - how to treat? Features Dr. Jack Cush.  QD272 - Natural RA https://youtu.be/Ie1u-_KqxVE PsO/PsA patient avoiding DMARDs and Biologics, and wants Natural therapies Features Dr. Jack Cush.  QD Clinics - lessons from the clinic, sponsored by RNL2025 in Dallas, TX; Feb 8 & 9, 2025  Register at RheumNow.live

In this episode, we sit down with Dr. Victoria Werth, a leading expert in dermatology and autoimmune diseases, to explore the study Understanding the Role of Type I Interferons in Cutaneous Lupus and Dermatomyositis: Toward Better Therapeutics. Dr. Werth delves into the complex immune mechanisms that drive skin manifestations in cutaneous lupus and dermatomyositis, two challenging autoimmune conditions. She explains how Type I interferons contribute to inflammation and tissue damage, and how understanding these pathways could pave the way for more targeted and effective treatment

Summary From the 2024 SF Derm Society Annual Meeting, dermatologist, Dr. David Fiorentino discuss the significance of auto-antibodies in diagnosing dermatomyositis. He explores various phenotypes associated with the disease, emphasizing the importance of recognizing specific symptoms and patient presentations to improve diagnostic accuracy and patient outcomes. The conversation highlights the need for dermatologists to be aware of the complexities of dermatomyositis and the potential for severe complications if not diagnosed and treated promptly.   Takeaways The six groups of DM specific antibodies are crucial for diagnosis. Understanding phenotypes can enhance diagnostic capabilities. NDA5 antibodies are linked to severe interstitial lung disease. Dermatomyositis can present without typical skin symptoms. Early intervention is critical for patients with NXP2 antibodies. Patients may present with atypical symptoms that require careful assessment. Auto-antibodies can guide treatment decisions in dermatology. Recognizing the signs of dermatomyositis can prevent severe outcomes. Collaboration among dermatologists is essential for patient care. Continuous education in dermatology is vital for improving patient outcomes.   Chapters 00:00 - Introduction to the Future of Dermatology Podcast 00:58 - Understanding Auto-Antibodies in Dermatomyositis 03:13 - Diagnostic Approaches in Dermatomyositis 05:48 - Identifying Phenotypes in Dermatomyositis Patients 08:57 - Conclusion and Future Directions

Summary Dr. Mehdi Rashighi, MD, discusses groundbreaking research in dermatology focusing on autoimmune skin diseases. The conversation delves into multiomics research, the role of interferons in skin diseases, and the impact of UV exposure on conditions like cutaneous lupus and dermatomyositis. The episode highlights the importance of understanding cytokine signatures and the potential for new treatments targeting specific immune cells.   Takeaways The SFDerm 2024 meeting showcased significant advancements in dermatology. Multiomics research is crucial for understanding autoimmune skin diseases. Type one interferon plays a key role in cutaneous lupus and dermatomyositis. Cytokine signatures can help identify new treatment targets. Plasmacytoid dendritic cells are important in the pathogenesis of lupus. UV exposure can exacerbate skin diseases like lupus and dermatomyositis. Clinical trials are exploring monoclonal antibodies against interferons. Understanding photosensitivity is vital for managing lupus patients. Research is ongoing to better understand the immune response in skin diseases.   Chapters 00:00 - Introduction to the Future of Dermatology Podcast 00:56 - Exploring Multiomics in Dermatology Research 02:53 - Understanding Interferon Signatures in Skin Diseases 05:58 - Photosensitivity in Cutaneous Lupus and Dermatomyositis

In this episode, we review the high-yield topic of ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Dermatomyositis / Polymyositis ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the Rheumatology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets

Chad Hartman talks with former WCCO Radio Producer Lindsay Guentzel about her battle with Dermatomyositis, how she's dealing with it, looking on the bright side of things and more, how this has helped her and more. To help her out, visit her GoFundMe https://www.gofundme.com/f/support-lindsay-guentzels-battle-with-dermatomyositis

Victoria Werth, MD interviewed by Flavia Fedeles, MD, FAAD

Welcome back Rounds Table Listeners!In this throwback episode, Drs. John and Mike Fralick discuss two papers – one, exploring IVIG in the treatment of dermatomyositis, and the second investigating the effect of tranexamic acid in patients with acute gastrointestinal bleeding.Trial of Intravenous Immune Globulin in Dermatomyositis (0:00 – 8:38).Effects of a high-dose 24-h infusion of tranexamic acid on death and thromboembolic events in patients with acute gastrointestinal bleeding (HALT-IT): an international, randomised, double-blind, placebo-controlled trial (8:38 – 18:04).And for the Good Stuff:Alberta using humour to attract workers (18:04 – 18:50).CBME in Residency Education (18:50 – 21:02).Questions? Comments? Feedback? We'd love to hear from you! @roundstable

Chad reacts to his visit with Lindsay Guentzel discussing her life with Dermatomyositis and we speak about how so many in the country and around the world are struggling through similar circumstances.

Chad's friend and former producer Lindsay Guentzel joins the show in studio to share openly about her battle with Dermatomyositis on Rare Disease Day.

The hour begins with friend and former WCCO colleague Lindsay Guentzel joining in studio to talk about her personal battle with Dermatomyositis as the topic of rare diseases carries the full hour.

आमिर खान के साथ फिल्म दंगल में काम कर चुकी सुहानी भटनागर की महज़ 19 साल की उम्र में अचानक हुई मौत से सभी सदमे में हैं.  सभी यह जानकर हैरान है की सुहानी की मौत स्किन से जुड़ी किसी बीमारी से हुई है. हर किसी के जहन में बस एक ही सवाल उठ रहा है कि आखिर ऐसी कौन सी बीमारी है जिसने इतनी कम उम्र में ही सुहानी की जान ले ली. जानिए आज ABP LIVE Podcasts पर FYI में जहाँ हमारे साथ जुड़ी हैं Dr Seema Oberoi Lall, MBBS, MD - Dermatology, Venereology & Leprosy, C.K. Birla Hospital, Gurgaon

Juvenile dermatomyositis, or JDM is a rare autoimmune myopathy. In their first episode back after sitting specialty exams, Freya and Anne use a case to help explain what JDM is, as well as presentation, treatment and diagnosis (plus a couple of tangents about their day to day work as doctors!).  Follow us on Instagram @yourekiddingrightdoctors Our email is yourekiddingrightpod@gmail.com Make sure you hit SUBSCRIBE/FOLLOW so you don't miss any episodes and RATE to help other people find us! (This isn't individual medical advice, please use your own clinical judgement and local guidelines when caring for your patients)  

Plasma cells and derm with Dr. Alicia Schnebelen - Subcutaneous fat necrosis of the newborn - Lenabasum: A cannabinoid for dermatomyositis - Botulinum toxin for Hailey-Hailey and Darier's disease - Dr. Schnebelen's lab: https://pathnetlab.com/ Alicia Schnebelen on social media: https://www.instagram.com/skinandscope/?hl=en https://twitter.com/skinandscope?lang=en Check out our video content on VuMedi!: https://www.vumedi.com/channel/dermasphere/ Luke's PDPC course and the Intermountain Derm Society meeting: ⁠⁠⁠https://registration.socio.events/e/idspdpc23/promo-codes/ATTENDEE⁠⁠ The University of Utah's Dermatology ECHO: ⁠⁠https://physicians.utah.edu/echo/dermatology-primarycare⁠⁠Connect with us! - Web: ⁠https://dermaspherepodcast.com/⁠ - Twitter: @DermaspherePC - Instagram: dermaspherepodcast - Facebook: https://www.facebook.com/DermaspherePodcast/ - Check out Luke and Michelle's other podcast, SkinCast! ⁠https://healthcare.utah.edu/dermatology/skincast/⁠ Luke and Michelle report no significant conflicts of interest… BUT check out our friends at: - ⁠Kikoxp.com⁠(a social platform for doctors to share knowledge) - ⁠https://www.levelex.com/games/top-derm⁠ (A free dermatology game to learn more dermatology!)

Join us in the week's episode where Rheumatology registrar, Dr Innocent Munzeiwa, gives us the run through on Dermatomyositis. 

Master Marc Zirogiannis talks about the unexpected passing of Taekwondo 1988 Olympic Gold medal winner and legend, Jimmy Kim this weekend in his home state of California from a rare disease. Statement from the family of Master Jimmy Kim (4/11/67- 6/23/23): "Master Jimmy Kim passed peacefully last night at 8:40 pm at UCSD Medical Center. Since May of 2022, Master Kim had been battling an uncommon and aggressive autoimmune disorder called Dermatomyositis that primarily attacked his lungs. He was hospitalized on Memorial Day due to breathing difficulty and low blood oxygen level and he was transferred to ICU last week until he passed. There will be more information, but the family requests privacy at this time." *This episode is presented by Bet Online.  Use the promo code BLEAV for your 50% Welcome Bonus

Welcome to LUNA Listens! This is where we publish all our blog posts in audio form for you to listen to at your own pace. Today we have the privilege of being joined by one of our Professional Advisors Dr Merry Wilkinson. In this post Merry shares with us a part of her research at Great Ormond Street hospital on Juvenile Dermatomyositis. Merry breaks down and explains what JDM is and why it is important to learn and know about it during myositis awareness month. You can find a full transcription of the post by clicking this link. Find us on: Instagram - @thelunaprojectuk Twitter - @theLUNAprojectt Facebook - The LUNA Project

4.07 Polymyositis and Dermatomyositis MSK/Rheum review for the USMLE Step 1 Exam Polymyositis and dermatomyositis are autoimmune inflammatory myopathies. They are caused by abnormal activation of T cells that attack skeletal muscle and both cause proximal muscle weakness, especially of the shoulders and pelvic girdle muscles. Polymyositis develops when there is abnormal activation of CD8 T cells, while dermatomyositis is primarily attacked by CD4 T cells. Both are diagnosed through a muscle biopsy and the presence of elevated CK levels and several different autoantibodies. Dermatomyositis includes dermatologic manifestations, such as gottron papules, heliotrope rash, and shawl rash. Both are associated with MI, interstitial lung disease, and various types of cancer (dermatomyositis more so). Both diseases require prompt treatment with steroids and immunosuppressive agents.

Klinisch Relevant ist Dein Wissenspartner für das Gesundheitswesen. Zwei mal pro Woche, nämlich dienstags und samstags, versorgen wir Dich mit unserem Podcast und liefern Dir Fachwissen für Deine klinische Praxis. Weitere Infos findest Du unter https://klinisch-relevant.de

If you're listening to this right now, it means the doors to my transformational 8-week program, The Health Transformation Accelerator are OPEN. We open the doors only for a few days, a couple of times a year, so make sure to SECURE YOUR TRANSFORMATION NOW, so you don't miss out on a seat. Today's guest is another success story from HTA. Hannah is a graduate of my most recent cohort, and she seriously takes trauma release and healing anxiety to the next level. Hannah shares her struggle with trauma - undergoing surgery at only a few weeks old, receiving a series of diagnoses and ultimately being bedridden only a few years ago. Hannah has struggled with debilitating anxiety throughout her life, and she was ready to finally get her life back. Her journey from anxiety to empowerment, from trauma to deep, deep trauma release and healing, and housebound to boxing is the example we all need to know that healing IS possible. We dive into what it took for her to create enough safety in the body through HTA so she could release the trauma that was holding her back. Hannah describes the experience of her trauma release that happened about midway through the program and what that release offered her in terms of healing. Hannah is an example of someone who does the work! You can see her dedication shine through as she touches on exactly how she got rid of her anxiety once and for all through the program. She is back to sleeping, working out, and enjoying life again. Listen in as Hannah shares how finding peace and healing through HTA changed her life in just 8 short weeks, and make sure to get a notepad and pen out to take notes on what she recommends others do to get started on their journey. To contact Hannah, find her on Instagram here. To get your seat in my HTA program, click here. // Get more healing tips at faithashenden.com Follow Faith on Instagram: @thathealingfeeling Send questions and feedback at thathealingfeelingpodcast@gmail.com

Hometown Radio 03/14/23 3p: Corene Canaan battles a rare disease called clinical amyopathic dermatomyositis

Klinisch Relevant ist Dein Wissenspartner für das Gesundheitswesen. Zwei mal pro Woche, nämlich Dienstags und Samstags, versorgen wir Dich mit unserem Podcast und versorgen Dich mit Fachwissen für Deine klinische Praxis. Weitere Infos findest Du unter https://klinisch-relevant.de

Welcome back Rounds Table Listeners! We are back today with our Classic Rapid Fire Podcast! This week, Drs. John and Mike Fralick discuss two recent papers – one, exploring the use of IVIG in the treatment of dermatomyositis, and the second investigating the effect of a tranexamic acid infusion in patients with acute gastrointestinal bleeding. ...The post Episode 52 – IVIG in Dermatomyositis and Tranexamic Acid in GI Bleeding appeared first on Healthy Debate.

Welcome back Rounds Table Listeners! We are back today with our Classic Rapid Fire Podcast! This week, Drs. John and Mike Fralick discuss two recent papers – one, exploring the use of IVIG in the treatment of dermatomyositis, and the second investigating the effect of a tranexamic acid infusion in patients with acute gastrointestinal bleeding. ... The post Episode 52 – IVIG in Dermatomyositis and Tranexamic Acid in GI Bleeding first appeared on Healthy Debate. The post Episode 52 – IVIG in Dermatomyositis and Tranexamic Acid in GI Bleeding appeared first on Healthy Debate.

50 High Yield Musculoskeletal/Rheumatology Questions. Review for your PANCE, PANRE, Eor's and other Physician Assistant exams. Merchandise Link: https://cram-the-pance.creator-spring.com/►Paypal Donation Link: https://bit.ly/3dxmTql (Thank you!)

Podcast is back! This week I discuss a pivotal RCT in dermatomyositis. Check it out and be sure to subscribe to my newsletter at ebrheum.com! 

Michelle Ulrich is a Registered Nurse with over 30 years of experience, specializing in cardiology. She currently works as an outcomes RN, managing cardiac registries. She is also a former national-level competitive bodybuilder, and is certified in personal training and nutrition through the National Academy.of sports medicine. She was given a diagnosis of dermatomyositis, started on immunosuppressants, and told there is no cure. She then made changes in her life and began healing. She is now off immunosuppressants. --- Support this podcast: https://anchor.fm/healingispossible/support

MSK Rheumatology part 2 of 2 review for your Pance, Panre, and Eor's. Merchandise Link: https://cram-the-pance.creator-spring.com/►Paypal Donation Link: https://bit.ly/3dxmTql (Thank you!)

In this episode our very first guest speaker Alicia Christine talks about her health journey after being diagnosed with Dermatomyositis. Follow Alicia Christine: @itsaliciachristine Connect with me: BriannaMonet App: App Store Google Play Join our new email list here. Follow me on IG: @_brianna.monet Email us: womentransformed@briannamonet.com

In this episode, Avery H. LaChance, MD, MPH, speaks about clinical pearls in dermatomyositis and cutaneous lupus, including key cutaneous features of both diseases, work-up for patients with each disease, gold standard treatments, and novel therapeutics. Dr LaChance also spoke about these topics during a session at the Congress of Clinical Rheumatology in Destin, Florida on May 14, 2022.

Victoria Werth, MD interviewed by Abel Torres, MD, FAAD

In this episode, we review the high-yield topic of Polymyositis / Dermatomyositis from the MSK section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets --- Send in a voice message: https://anchor.fm/medbulletsstep1/message

Joey has a podcast that is similar to what we are doing her at Fire Through Fog and I think that is great! We need as many people as we can providing a platform for people to share their stories. Joey started his podcast after finding his way through his own fog. Connect with Joey:Instagram - https://www.instagram.com/joeybraun_/Mindshape Facebook - https://www.facebook.com/mindshape2Mindshape Instagram - https://www.instagram.com/mindshapepod/https://www.instagram.com/mindshapepodcast/Join the FIRE THROUGH FOG Facebook Group:www.facebook.com/groups/firethroughfogFollow us on Instagram: www.instagram.com/firethroughfog

In this episode, we review the high-yield topic of Dermatomyositis / Polymyositis from the Rheumatology section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets

This week we talk candidly about how we went from beer swinging lushes to tee total vegans. In 2011 Sharon was struck down by a rare autoimmune disease, Dermatomyositis a rare skin and muscle disease that left her practically in a wheelchair. She was put on a concoction of medicines and was told to accept her “new normal.” There was no cure, but they told her they could manage the disease through drugs. After losing most of hair, little improvement on her muscles and a very extreme skin rash, she went on a mission to find another way. We discuss the highs and lows of trying to get well at a time where my husband had just left me and we were struggling with small kids. We decided to turn our backs on the bottle of red to cope and turned to wheatgrass and turmeric shots and we've never looked back.   Remember to hit SUBSCRIBE or FOLLOW so you don't miss any new episodes and follow us on the links below for more: www.thedetoxbarn.co.uk www.gavinandgavin.co.uk Insta: @thedetoxbarn Facebook: @TheDetoxBarn You Tube: The funny Vegans

Episode 17: Dawn Veselka's Story of Raising a Child With Mixed Connective Tissue Disease In this episode, guest Dawn Veselka discusses her experience raising a daughter with a mixed connective tissue disorder. Her mix is juvenile arthritis, scleroderma, Raynaud's and dermatomyositis. Sadie's triggers are exposure to viruses, sunlight, and certain foods. They determined her triggers through trial and error. Her daughter, Sadie, started showing signs of her condition at 18 months. She started showing trunk rashes, stopped being able to walk, not eating much due to jaw pain, wouldn't hold a spoon or pencil, and  ate with her fingers. Dawn tried to find a diagnosis for her, but the doctors didn't think she needed to get testing for Sadie. Eventually, she couldn't move or get off the floor. She was told that she was just a worried first time mom, was told that she was putting her child through horrible tests for herself and not her child. She had to research things on the internet to find a proper doctor, and then Sadie was properly tested to find her actual diagnoses. Dawn recommends listening to your parenting instincts.   To help Sadie, they tried a lot of different treatments, including medications, shots, IVIG, infusions, anti-inflammatory diets, chiropractic, and acupuncture. It took a lot of time and treatments for Sadie to be able to be more independent with activities, physically. Due to discrimination from others, Dawn and Sadie decided to do homeschooling, which has worked very well for Sadie. Dawn heard so many stories of teacher's discrimination against children with chronic illnesses. Sadie did a lot of co-ops to help with school. Although Dawn  didn't want Sadie to have to use a wheelchair, Sadie greatly increased her independence and abilities when using a wheelchair, so she started using one.   Dawn recommends making family a priority. Sadie prioritizes her energy and plans in down time or recovery time for afterward. Dawn has advocated for Sadie by standing up for her, getting involved in foundations, teaching Sadie to follow her internal voice, and giving  up expectations others put on her. Sadie has found kind and empathetic friends who are really compassionate. Dawn  taught Sadie how to stand up for herself. They use video chats to help Sadie be social when she doesn't feel well enough to get together in person. Sadie is finally in a place where her condition is very stable.   Dawn uses social supports by talking with other medical moms and  running a charity. To advocate for yourself, never give up, and don't search for advice from people who haven't been through it because they won't understand.   Chronic Warriors Org Chronic Warrior Collective Body Check Journal LinkedIn Instagram Dawn Instagram Chronic Warriors Collective   Links: Website Facebook Instagram Email Twitter     Please subscribe to our podcast in the iTunes store, or wherever you find your podcasts, Leave us a 5-star review, to help us know what you like and what you don't like, and to make sure other like-minded people find support through this podcast. Hosted by: Jessica Temple  Music by Antarcticbreeze Music Disclaimer: Our show is not designed to provide listeners with specific or personal legal, medical, or professional services or advice. Listeners should always consult their health care provider for medical advice, medication, or treatment. Copyright 2021 Jessica Temple

Katie is a Miami based DJ who has such an inspiring back story to tell. From looking at her, you would have no idea that she struggled with a health problem from when she was a teenager all throughout her life and has only just recently come off her medication. She shares how it all started, how it affected her life, how she finally got diagnosed with dermatomyositis, and how it gave her a greater appreciation of life. She has traveled the world, works with children, and is a DJ! She is part of The Fates Collective which is a group of female DJs who all support each other and do gigs all over the states! Katie also has a pet bird called Skylar, so we talk about life with a bird, how to train a bird, how intelligent Skylar is, etc. We really hope you enjoy learning more about Katie, about her background, what she has gone through, and also how she made it to where she is now! If you enjoy listening to our podcast and would like to support us, check out our Buy Me a Coffee page: https://www.buymeacoffee.com/jippodcast Our website: https://justinterestingpeople.com Follow Katie on Instagram: https://www.instagram.com/katieoxmusic Follow us on Instagram: https://www.instagram.com/justinterestingpeople https://www.instagram.com/rosieandre_com https://www.instagram.com/jeremieandre_fr

In this episode I cover polymyositis and dermatomyositis.If you want to follow along with written notes on polymyositis and dermatomyositis go to https://zerotofinals.com/medicine/rheumatology/myositis/ or the rheumatology section in the Zero to Finals medicine book.This episode covers the definitions, associations, complications, features, diagnosis and management of polymyositis and dermatomyositis. The audio in the episode was expertly edited by Harry Watchman.

As we continue our Rare Disease Interview Series, I am excited to welcome back Dawn Boyesen Veselka, Sadie's Mom & Author of Body Check Journal.  Dawn's daughter Sadie suffers from Mixed Connective Tissue Disease including Juvenile Arthritis, Scleroderma, Dermatomyositis and Raynaud's.  Listen in as Dawn shares her family's journey with rare disease, chronic illness & the many financial hurdles parents face.  

As we continue our series on Chronic Pain & Pain Management, I am excited to welcome back Dawn Boyesen Veselka, Sadie's Mom & Author of Body Check Journal. Dawn's daughter Sadie suffers from Mixed Connective Tissue Disease including Juvenile Arthritis, Scleroderma, Dermatomyositis and Raynaud's. As you can imagine multiple diagnosis's can be extremely complex especially when the conditions contribute to daily chronic pain. Listen in as Dawn shares some of her most helpful discoveries (both traditional and non-traditional) that she has learned during her decade-long journey to find pain relief and pain management for Sadie! Learn more about Body Check Journal : http://www.bodycheckjournal.com/   Product Info:    BAUD Machine: http://www.baudtherapy.com    BEMER mat: https://youtu.be/3_zeMY6qGao   Tens Unit- https://amzn.to/2IhzjoG (affiliate)   CBD Oil - https://amzn.to/2KKwieX (affiliate)