Podcasts about usagainstalzheimer

BrainStorm wants to hear from you! Send us a text.in this episode of the "BrainStorm" by UsAgainstAlzheimer's, George Vradenburg, Co-founder and Chairman of UsAgainstAlzheimer's, and Russ Paulsen, the organization's Chief Operating Officer, discuss the impact of the Trump administration's policies on Alzheimer's research with host Meryl Comer. The conversation highlights the systematic dismantling of the National Institutes of Health (NIH) and other critical agencies, which threatens to undermine Alzheimer's research and public health. Vradenburg and Paulsen express concerns about the lack of transparency in the reorganization and the potential negative effects on drug reviews and approvals due to significant cuts at the FDA. They highlight the importance of protecting key programs that support seniors and the potential global impact of these policy changes. Despite the challenges, both Paulsen and Vradenburg are optimism about scientific advances in diagnosing and treating Alzheimer's, including the development of blood tests and new treatments. Hear the call to action for listeners to advocate for continued support for Alzheimer's research and to contact their members of Congress to ensure that funding remains a priority. This is a must listen episode!  This episode is sponsored by Genentech.Support the show

Jason Resendez joins host Ron Aaron and co-host Carol Zernial to talk about the policy environment for caregiver supports on this edition of Caregiver SOS. About Jason Jason Resendez is a nationally recognized care advocate. He currently serves as the President and CEO of the National Alliance for Caregiving, where he leads research, policy, and programmatic initiatives to build health, wealth, and equity for America’s 53 million family caregivers. In 2023, Jason was named one of the most consequential leaders in health and medicine by STAT News. Prior to joining NAC, Jason was the founding executive director of the UsAgainstAlzheimer’s Center for Brain Health Equity where he pioneered the concept of Brain Health Equity through peer-reviewed research, public health partnerships, and public policy. In 2020, Jason was named one of America’s top influencers in aging by PBS’s Next Avenue alongside Michael J. Fox and Surgeon General Dr. Vivek Murthy. He has been quoted by The New York Times, The Washington Post, The Wall Street Journal, STAT News, and Univision on issues related to caregiving and health equity. Jason is from South Texas and graduated from Georgetown University. Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.See omnystudio.com/listener for privacy information.

We want to hear from you! Send us a text.Journalist and author Greg O'Brien, diagnosed with early-onset Alzheimer's over a decade ago, shares with BrainStorm host Meryl his determination to be heard at the Washington D.C. rally at the Lincoln Memorial to protest proposed cuts to NIH biomedical research funding that would critically affect Alzheimer's disease research.  Greg also candidly shares what it takes for him to navigate at this late stage in the disease.This episode also features a TopLine commentary by George Vradenburg, founder and chair of UsAgainstAlzheimer's, on the mobilization of patient advocacy organizations across diseases fighting to maintain the integrity of America's biomedical and scientific research.This episode is sponsored by Genentech.Support the show

In this episode of BrainStorm, host Meryl Comer continues explore the challenges of dementia diagnosis in her interview with Doreen Monks, a former neuroscience nurse practitioner, who initially received an Alzheimer's diagnosis that was revised eight years later. The conversation highlights issues in the dementia diagnosis process, the gap between scientific advances and clinical practice, and the emotional journey of living with a neurodegenerative condition. Doreen Monks' personal journey offers both practical advice and emotional support for others facing similar challenges, emphasizing hope, proactive health management, and the importance of scientific advances reaching clinical practice more efficiently.This episode provides valuable insights for patients and caregivers navigating dementia diagnoses while highlighting the rapidly evolving understanding of neurodegenerative diseases. Take a listen!BrainStorm by UsAgainstAlzheimer's is sponsored by Genentech (gene.com)Produced by Susan Quirk and Amber RonigerSupport the show

Don't miss the next episode of #BrainChat, where we discuss memory loss and dementia with Stephanie J. Monroe, JD. As Vice President of Health Equity at UsAgainstAlzheimer's, Stephanie has spent her career addressing Alzheimer's impact on communities of color and advocating for greater minority participation in clinical trials.

Nearly 7 million Americans are living with Alzheimer's disease. By 2050, this number is projected to rise to nearly 13 million. For years, research into the disease remained underfunded -- and patients who received a diagnosis had few options when it came to treatment. But in recent years, that has begun to change. “There are exciting developments in the research field at each stage of our lives that affect the strength of our brain and the ability of the brain to resist brain challenges,” says George Vradenburg.Vradenburg is chairman of the non-profit UsAgainstAlzheimer's, which he co-founded in 2010 with his late wife, Trish. He joins Diane for a conversation about his hopes and fears for Alzheimer's research, and how the Trump administration could change those. 

Alzheimer's is not just an aging issue but a lifelong brain health challenge that has major economic and societal implications. George Vradenburg, Chairman and Founder of UsAgainstAlzheimer's, discusses the recent launch of the “Brian House” at Davos World Economic Forum with host Meryl Comer.  The conversation covers several crucial topics, including the potential role of AI in enhancing brain capacity, the state of Alzheimer's research funding, and the importance of diverse representation in clinical trials. Vradenburg emphasizes the global scope of the challenge stating that brain disorders are now the world's leading cause of disability with projected costs reaching $8-10 trillion by 2050.  You don't want to miss this informative episode!Support the show

Music and the arts have a positive impact on brain health, mental well-being, and quality of life. Renée Fleming, World Renowned Soprano and Global Arts Health Advocate shares the latest science behind the healing power of music and the brain with BrainStorm host Meryl Comer. Fleming's anthology, Music and Mind: Harnessing the Arts for Health and Wellness, is a collection of essays about the powerful impact of music on health and human experiences, particularly how it plays a critical role to help preserve memory. In part 2 of the interview Fleming discusses the need for greater integration of the arts into the healthcare system and the role AI can play in advancing music related medical research.  You won't want to miss this conversation highlighting the intersection of art, music, and science. Support for BrainStorm by UsAgainstAlzheimer's is provided by Eisai. Support the show

Long-term and health care costs for people living with Alzheimer's and other dementias are projected to reach $360 billion in the Unites States this year. In part 2 of the interview with Investment Advisor and New York Times Bestselling author Ric Edelman, host Meryl Comer asks about the financial challenges faced by families dealing with Alzheimer's. Listen to the advice Edleman has about long-term care insurance and mistakes individuals commonly make in planning for retirement. You won't want to miss this informative episode of BrainStorm!BrainStorm by UsAgainstAlzheimer's is sponsored by Biogen and EisaiSupport the show

Alzheimer's disease can devastate families financially and requires smart financial planning for healthy longevity. Investment Advisor and New York Times bestselling author Ric Edelman and host Meryl Comer discuss the financial implications of Alzheimer's. Mr. Edelman highlights a few common financial mistakes individuals often make, including procrastination in planning for retirement. Better diagnostic tools for Alzheimer's and the importance of early detection are needed to help manage the building economic burden of the disease on individuals and society. You won't want to miss this informative episode of BrainStorm! BrainStorm by UsAgainstAlzheimer's is sponsored by Biogen and EisaiSupport the show

When it comes to brain health, it can be information overload. Drs. Dean and Ayesha Sherzai, co-directors of the Brain Health and Alzheimer's Prevention Program at Loma Linda University give their perspective on brain health supplements and the tests to have your doctor administer. In this episode of BrainStorm by UsAgainstAlzheimer's, host Meryl Comer also delves into the couple's research and the difficulties of recruitment. Their work, featured in the Netflix documentary You Are What You Eat, shows the crucial role diet plays in brain health. BrainStorm by UsAgainstAlzheimer's is sponsored by Biogen and EisaiSupport the show

Can small adjustments to lifestyle make a difference for healthy longevity? In this episode of BrainStorm by UsAgainstAlzheimer's, host Meryl Comer focuses on Alzheimer's prevention with Drs. Dean and Ayesha Sherzai, co-directors of the Brain Health and Alzheimer's Prevention Program at Loma Linda University. The couple's research, including their work featured in the Netflix documentary You Are What You Eat, shows that diet plays a crucial role in brain health. Their discussion underscores that every positive step can lead to substantial benefits in brain health and Alzheimer's prevention. Up to 90% of Alzheimer's cases can be prevented with optimal lifestyle changes, according to the Sherzais. You don't want to miss this episode. BrainStorm by UsAgainstAlzheimer's is sponsored by Biogen and EisaiSupport the show

How does someone with a movement disorder that effects executive functioning suddenly move to music with a dance tempo?  Concetta M. Tomaino, Executive Director and Co-founder of the Institute for Music and Neurologic Function, and long-time collaborator with famed British neurologist Oliver Sacks, explores the power of music to reach those with dementia and other neurologic conditions. Tomaino dives into the research with host, Meryl Comer on ways to use music to awaken cognitive reserve in our loved ones deep into late-stage Alzheimer's disease.  You won't want to miss this episode in BrainStorm's six-part series that showcases researchers & clinicians featured in Renee Fleming's anthology Music and Mind: Harnessing the Arts for Health. Support for BrainStorm by UsAgainstAlzheimer's is provided by Biogen and Genentech. Support the Show.

How can someone with supposedly no memory recognize a familiar melody? Concetta M. Tomaino, Executive Director and Co-founder of the Institute for Music and Neurologic Function, and long-time collaborator with famed British neurologist Oliver Sacks, dives into the research with host, Meryl Comer. Tomaino shares clinical techniques to help us reach and awaken cognitive reserve in our loved ones with music deep into late-stages of Alzheimer's disease.  You won't want to miss this episode in BrainStorm's six-part series that showcases researchers & clinicians featured in Renee Fleming's anthology Music and Mind: Harnessing the Arts for Health.Support for BrainStorm by UsAgainstAlzheimer's is provided by Biogen and Genentech.   Support the Show.

How personal and meaningful are music and the arts to your brain health, mental well-being, and quality of life? Renée Fleming, World Renowned Soprano and Global Arts Health Advocate shares the latest science behind the intersection of arts and health with BrainStorm host Meryl Comer. Fleming's new anthology, Music and Mind: Harnessing the Arts for Health and Wellness, is a collection of essays about the powerful impact of music on health and the human experience. You won't want to miss this first episode in BrainStorm's six-part series that explores the findings and speaks to scientists featured in Music and Mind.Support for BrainStorm by UsAgainstAlzheimer's is provided by Genentech Support the Show.

2023 has brought exciting advances in the prevention, detection, and treatment of Alzheimer's.  George Vradenburg, Chairman and Co-Founder of UsAgainstAlzheimer's, Chairman of the Global CEOi and Founding Chair with the Davos Alzheimer's Collaborative, spoke with BrainStorm host Meryl Comer about the shared research commitment to get a vaccine, or immunotherapy intervention, on market by the end of the decade. Listen as George discusses the challenges to make a future free of Alzheimer's a reality.  Produced by Susan Quirk and Amber Roniger. Support the show

Jessica Fepelstein, ASTHO Analyst for State and Community Engagement, explains the health equity core concepts work that is happening as part of the STRETCH Initiative; Dr. Esther Muna, Chief Executive Officer and Territorial Health Official for the Northern Mariana Islands, discusses the ASTHO policy statement calling for Medicaid funding parity for the U.S. territories; Daphne Delgado, Program Director with the Center for Brain Health Equity at UsAgainstAlzheimer's, says the organization has resources for doing work in black and Latino communities; and an ASTHO webinar will help you learn new strategies to improve access to emergency contraception during. ASTHO Blog Article: Centering the Community's Voice in State-Led Health Equity Initiatives ASTHO News Release: ASTHO Releases Five Health Policy Statements UsAgainstAlzheimer's Webpage: Our Data Insights UsAgainstAlzheimer's Webpage: Let's Talk Alz this National Alzheimer's Disease Awareness Month UsAgainstAlzheimer's Webpage: Culturally Tailored Communications Resources ASTHO Webinar: Provider Strategies to Improve Access to Emergency Contraception  

Dr. Marcus Plescia, ASTHO Chief Medical Officer, examines ASTHO's new webpage with a collection of evidence-based technical packages covering key public health concerns; J.T. Lane, ASTHO Senior Vice President for Population Health and Innovation, outlines the work being facilitated by the Trusted Exchange Framework and Common Agreement or TEFCA; and Daphne Delgado, the Program Director for the Center for Brain Health Equity at UsAgainstAlzheimer's, says 2023 has been a historic and exciting year for the Alzheimer's community. ASTHO Webpage: Evidence-Based Public Health ASTHO Blog Article: TEFCA – A Better User Experience for Exchanging Public Health Data UsAgainstAlzheimer's Webpage: Alzheimer's Disease – Get The Facts  

Is every clinical trial created equal? In this episode, we learn some shocking information about the proportions of populations normally included in clinical trials. We specifically cover recent treatments for Alzheimer's disease to discuss how we may have failed to consider minority populations in our research and how we can use precision medicine to create more equitable clinical trials. We also discuss how we can redevelop trust in scientific institutions in the wake of the pandemic and how health professionals can adapt their research techniques to include data from historically underrepresented populations. We had a wonderful cast join us for this episode. We had Stephanie Monroe, Vice President and Senior Advisor of Health Equity and Access for UsAgainstAlzheimer's, a national advocacy group that aims to diversify the movement to cure Alzheimer's disease. After working on Capitol Hill and holding the position of Assistant Secretary of Education for Civil Rights for three years, Stephanie's work has focused on raising awareness about the disparate impact of Alzheimer's disease on communities of color and women. We also had Consuelo Wilkins, Senior Vice President and Senior Associate Dean of Health Equity and Inclusive Excellence, and a Professor of Medicine at Vanderbilt University Medical Center. She is an elected member of the National Academy of Medicine and works with the All of Us Research Program, a national precision medicine project. She is also the Principal Investigator of three NIH-funded centers which aim to decrease health disparities for communities of color and create new approaches to recruiting marginalized communities for clinical trials.  This conversation was so fun and yielded so many valuable insights regarding how we can create more equitable research for communities of color. We hope you enjoy the episode! Interested in how misinformation circulates? Listen to our previous podcast episode with guest Evan Thornburg. Make sure to follow our Instagram, Twitter, Threads, TikTok, and Facebook accounts so you can stay up to date on all our new content. Also don't forget to follow us on Twitter @kbjohnsonmd and @htbland21. You can also find us wherever you typically get your podcasts. Thanks for listening! Instagram: @infointhernd Twitter: @infointhernd  Threads: @infointhernd TikTok: @infointhernd  Website: https://www.kevinbjohnsonmd.net/podcast

There is nothing more powerful than the stories of people who are directly affected by Alzheimer's. This week's BrainStorm host, Jon Summers, Chief Communications Officer at UsAgainstAlzheimer's, spoke with a few patients and caregivers who share their deeply personal experiences to help raise awareness of Alzheimer's. They discuss the disproportionate impact of the disease on Black and Latino people, and the hope they have for the future.UsAgainstAlzheimer's lifts voices of Alzheimer's patients and caregivers to raise awareness of the disease, educate, and eliminate stigma. The UsAgainstAlzheimer's Story Project—Voices of Hope, Inspiration and Courage is made possible by an educational grant provided by Biogen. Produced by Susan Quirk and Amber RonigerSupport the show

 Alzheimer's is being singled out in Medicare's decision on reimbursement for patients. President of Global Alzheimer's Platform Foundation and Co-Founder of UsAgainstAlzheimer's, John Dwyer spoke with host Meryl Comer about the ramification to patients and how this decision will create greater disparities. Take a listen.This episode is sponsored by Genentech and Eisai. Support the show

Fayron Epps, PhD, RN, a nurse with 20+ years' experience creating culturally relevant programs to reduce health disparities for underserved populations, highlighted significant health findings, negatively impacting the Black community.  Dr. Epps passionately implored patients, their families, caregivers, and spiritual leaders to be engaged, for it is clear the status quo will be insufficient to sustain the community, and the consequences could be dire. The impending threat emphasized the urgency to adapt and collaborate on this new path that ensures the community's survival and vitality.  “I heard that by 2030, 40% of individuals in America with a diagnosis of Alzheimer's disease or dementia would be Black or Latino – that's seven years away… This is from a report released by Florida International University and UsAgainstAlzheimer's”. - Fayron Epps, PhD, RN Dr. Epps can be reached at 678-723-8188 or through email at fepps@emory.edu.

Russ Paulsen, Chief Operating Officer for UsAgainstAlzheimer's, explains how some recent coverage decisions from CMS are affecting thousands of patients a day; ACIP's public comment period RSV vaccines is officially open; Tony Newberne, a patient advocate from NC's 14th congressional district, discusses his policy priorities, including QALY reforms, as he gets ready for Patients Rising Now's Washington D.C. We The Patients Fly-In; and Patients Rising Now has submitted a letter to the Massachusetts Joint Committee on Health Care Financing supporting bill S754 which would mandate comprehensive coverage for obesity treatment. UsAgainstAlzheimer's Webpage: New Poll: Huge Majorities Want Medicare to Cover Cost of Alzheimer's Drugs CDC Webpage: ACIP Meeting Information Massachusetts Legislature Webpage: Bill S.754  

Jessica and her Mother, CG. When we think of someone caring for a loved one, our first impression isn't of a person in their mid-twenties. Generally, we think of an older adult spouse or middle-aged child caring for a parent. However, a rapidly growing population of caregivers are millennials.  While millennial caregivers face all the same ups and downs as their older peers, they're also at a point in their lives that can compound the challenges of caregiving. They're often in less financially stable situations, trying to launch their careers or even start college. "This is a destabilizing disease for all communities, but has acute challenges for millennials and particularly millennials of color," said Jason Resendez, the executive director of the Latino coalition of the nonprofit UsAgainstAlzheimer's. I talk to Jessica Guthrie, a full-time millennial caregiver, advocate, educator, and nonprofit senior executive, in today's episode.  Jessica is her mother's full-time caregiver, who was diagnosed with Early Onset Alzheimer's Disease eight years ago. For the first half of her journey, Jessica was caregiving from a distance while she worked in Texas and her mother lived in Virginia. After years of consistent travel, she recently moved back home to live with her mother to ensure she received the most attentive care. Jessica deeply cares about amplifying the voices and experiences of millennial caregivers as they navigate the complexities and rigors of the healthcare system, continue to thrive in their career growth, and intentionally balance their self-care and well-being. You can find her teaching dance fitness classes at her local YMCA when she's not working or caregiving.  Jessica is also the Vice President and Chief Program Officer at Teach For America Dallas-Fort Worth. She works alongside a talented team to recruit, train and support our nation's most promising leaders to influence systems-level change in their classrooms and beyond. She has been instrumental in developing the leadership and teaching capacities of over 1,200 education leaders, reaching 60,000 students daily. Jessica profoundly believes that all children deserve unparalleled access to quality education to self-determine their futures in the face of our country's history and ongoing systemic inequity.   Jessica is now working on blending her passion for equity, education, caregiving, and dementia care to support families and companies better helping our aging loved ones.  Jessica started an Instagram account called, CareerCargivingCollide, where she shares her journey and advice daily. There are three things necessary for a podcast to be successful. One, great listeners like yourself. Two are sponsors who help cover the expenses of producing the podcast. Three great listeners who help support the podcast by taking advantage of the sponsors' special offers. With that said, here are our sponsors; Pharma-C Company (previously Pharma-C Wipes) ​Life is a journey, and at Pharma-C-Wipes, we provide products that support you at each twist and turn,when you need it. Have you ever had a loved one fall for a spam caller? How about a well-meaning donation request? You can put a stop to those now. Relevate from NeuroReserve Make Your Brain Span Match Your LifeSpan With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram Twitter LinkedIn  Facebook Contact Jen at hello@fadingmemoriespodcast.com

The Food and Drug Administration expedited approval of Lecanemab, a drug developed by Eisai and Biogen, that demonstrated positive results in slowing Alzheimer's disease. What does this mean for the future of Alzheimer's advocacy?In this episode of BrainStorm host Meryl Comer talks with George Vradenburg, Chairman and Co-Founder of UsAgainstAlzheimer's, Convener of Global CEOi and Co-Convener with the World Economic Forum of the Davos Alzheimer's Collaborative. They explore the implications of the approval of Lecanemab (or Leqembi) worldwide and whether the approval encourages healthy at-risk adults 50 plus to understand their dementia risk profile.Support the show

The Food and Drug Administration expedited approval of Lecanemab, a drug developed by Eisai and Biogen, that demonstrated positive results in slowing Alzheimer's disease. What does this mean for the future of Alzheimer's advocacy?In this episode of BrainStorm, host Meryl Comer talks with George Vradenburg, Chairman and Co-Founder of UsAgainstAlzheimer's, Convener of Global CEOi and Co-Convener with the World Economic Forum of the Davos Alzheimer's Collaborative.  They discuss the immediate implications of the drug approval, how it will impact the Alzheimer's movement, and what it means for the future of Alzheimer's disease. Do you have feedback or an idea for the podcast? Send us a note at BrainStorm@usagainstalzheimers.org.Support the show

Rising longevity and the aging of boomers worldwide are radically altering both the demographic landscape and every aspect of our personal, social, financial, and political lives. In this episode of BrainStorm, UsAgainstAlzheimer's National Summit keynote speaker Ken Dychtwald, Founder and CEO of Age Wave, talks about the future of health, medicine, aging, and longevity.  What gero-science breakthroughs are currently at the tipping point and how can we ensure that our health spans and brain spans match our life spans? Dr. Dychtwald is counted among the foremost visionaries and original thinkers in the field and was honored by World Leaders magazine as one the world's visionary leaders making an impact in 2022.Do you have feedback or an idea for the podcast? Send us a note at BrainStorm@usagainstalzheimers.org.Support the show

Alzheimer's prevention, early detection, and access to treatments that builds equity for all must begin within communities. In this episode of BrainStorm, host Meryl Comer speaks with Dr. Fayron Epps, Assistant Professor and Director of Community Engagement and Research, Office of Diversity, Equity, and Inclusion, Nell Hodgson Woodruff School of Nursing, Emory University. They discuss the commitment Dr. Epps and UsAgainstAlzheimer's has made to educate minority communities on ways to maintain a healthy brain and support families facing dementia.  Dr. Epps has a strategy to engage communities and meet them where they are which is beginning to break down barriers.Support the show

People of all ages worry about not getting enough sleep, and yet many don't mention it as a concern to their doctor. When it comes to brain health, how important IS a good night's sleep? In this episode of BrainStorm, host Meryl Comer speaks with Erik K. St. Louis, M.D, M.S., Co-Director of the Center for Sleep Medicine and Director of the Mayo Sleep Behavior and Neurophysiology Research Laboratory, at the Mayo Clinic in Rochester, Minnesota. Dr. St. Louis gets down to the basics of the sleep-brain connection and the science behind it.  In part one of our two-part series on sleep, learn why people experience more sleep problems as they and how to measure a good night's sleep.Dr. St. Louis' class on learning to prioritize sleep can be found at UsAgainstAlzheimer's Brain Health Academy. To register for his class and learn more about Brain Health Academy, go to https://www.usagainstalzheimers.org/brain-health-academy.To register for National Alzheimer's Virtual Summit go to AlzSummit.org and attend for free.  Support the show

In part 2 of BrainStorm, Nutrition and Alzheimer's,  host Meryl Comer continues to speak with Ayesha Z. Sherzai, MD, MAS, Vascular Neurologist, Research Scientist and Dean Sherzai, MD, PhD, MPH, MAS, Behavioral Neurologist / Neuroscientist; and Co-directors of the Alzheimer's Prevention Program at Loma Linda University. This dynamic husband and wife duo lead the largest clinical and observational study on Alzheimer's. Their book “The Alzheimer's Solution” on the brain-food connection  shows how to reduce the risk of Alzheimer's with a healthy diet. Go to https://www.usagainstalzheimers.org/brain-health-academy to register for Team Sherzai's class on Brain Healthy Living to Improve Cognitive Function at UsAgainstAlzheimer's Brain Health Academy, and to learn more about the Brain Health Academy.Support the show

Poor nutrition is a major health problem that affects every part of the body, including the brain. It is among the top risk factors for dementia. In this episode of BrainStorm, host Meryl Comer speaks with Ayesha Z. Sherzai, MD, MAS, Vascular Neurologist, Research Scientist and Dean Sherzai, MD, PhD, MPH, MAS, Behavioral Neurologist / Neuroscientist; and Co-directors of the Alzheimer's Prevention Program at Loma Linda University. This dynamic husband and wife duo lead the largest clinical and observational study on Alzheimer's. Their book “The Alzheimer's Solution” on the brain-food connection  shows how to reduce the risk of Alzheimer's with a healthy diet. Their class on brain healthy living to improve cognitive function at UsAgainstAlzheimer's Brain Health Academy .To register for their class and learn more about Brain Health Academy, go to https://www.usagainstalzheimers.org/brain-health-academy.Support the show

BrainStorm Episode 23: Glenda Wrenn Gordon, MD, MSHP – The Power of Telehealth If necessity is the mother of invention, then the pandemic has created a wealth of opportunities for people looking to address some of the nation's most pressing challenges, including brain and mental health. In this episode of BrainStorm, host Meryl Comer speaks with Dr. Glenda Wrenn Gordon, President of Mindoula Clinical Services, about the power of telehealth and the important role of technology in early detection of dementia and caregiver support. One such tool is BrainGuide by UsAgainstAlzheimer's, a web-based questionnaire that allows you to check in on your brain health, or that of a loved one, and provides you with customized resources based on your results. Learn more at mybrainguide.org.Support the show

The global pandemic brought issues of diversity and equity in healthcare to the forefront. By 2030, nearly 40 percent of all Americans living with Alzheimer's will be Black or Latino. Latinos are 1.5 times as likely as non-Hispanic Whites to develop Alzheimer's. In this episode, BrainStorm host Meryl Comer speaks with Dr. Jane Delgado, President and Chief Executive Officer of The National Alliance for Hispanic Health and author of the book series, The Buena Salud® Guides and The Latina Guide to Health. Listen as Dr. Delgado shares how diversity in equity is about seeing everyone, and what is being missed when the health profile of black and brown communities are lumped together to evaluate current models of health and risk factors.After the episode, learn more about UsAgainstAlzheimer's equity work at https://www.usagainstalzheimers.org/health-disparities-race-and-alzheimersSupport the show

The Alzheimer's journey can range from three to twenty-plus years. Typically, people living with late-stage Alzheimer's or another dementia decline to a point when they are no longer able to communicate. But for some, after years of relative silence, they can suddenly communicate coherently, even if only for a short period of time. This phenomenon is called paradoxical lucidity in dementia. In this episode of BrainStorm, Meryl Comer speaks with Dr. Joan M. Griffin, Professor of Health Services Research at the Mayo Clinic College of Medicine and Consultant at the Kern Center for the Science of Health Care Delivery at the Mayo Clinic, about the moments when people in the late stage of Alzheimer's regain the ability to communicate. Listen as Dr. Griffin's delves into her landmark study to understand these lucid moments, and how they affect family caregivers. Learn about some triggers and what these moments mean. After the episode, learn more about UsAgainstAlzheimer's A-LIST®, an online community where people with dementia, caregivers and anyone interested in brain health come together to better understand the experience of living with the disease, caring for a loved one, and how to take care of our brains. Join more than 10,000 A-LIST members answering monthly surveys that help the world know what matters most to us. Sign up at ALIST4research.org.Support the show

2022 is already proving to be one of the most pivotal years in the history of the fight against Alzheimer's. Along with major accomplishments in areas like research and prevention, Alzheimer's patients have been caught in the crossfire of inter-agency politics between the FDA and the Centers for Medicare and Medicaid (CMS), which recently announced it would deny Medicare coverage for FDA-approved Alzheimer's treatments unless patients participate in highly restrictive clinical trials.George Vradenburg, Co-Founder and Chairman of UsAgainstAlzheimer's and Russ Paulsen, Chief Operating Officer, join host, Meryl Comer, to review the Alzheimer's Advocacy scorecard. They discuss successes that include the creation of ARPA-H (Advanced Research Projects Agency for Health), increased funding for research, and the addition of a prevention goal in the National Alzheimer's Plan - major successes for patients that are clouded by the recent ruling issued by CMS. Listen to the conversation as they talk about this unprecedented decision and its impact on not only Alzheimer's patients but other patient groups, like cancer, that benefit from the FDA's Accelerated Approval Program.You can help reduce stigma and misconceptions about dementia and empower others to speak freely and live life to the fullest. Share your experiences by email at story@usagainstalzheimers.org. The Story Project by UsAgainstAlzheimer's: Giving Voice to What Matters Most, will feature the stories of people who are living with Alzheimer's and other dementias.Support the show (https://www.usagainstalzheimers.org)

George Vradenburg is the co-founder and chairman of USAgainstAlzheimer's, a patient advocacy organization founded in 2010, which has successfully worked to increase funding for Alzheimer's and dementia research. Along with his philanthropic activities, George Vradenburg is also a very successful corporate lawyer and has been the Executive Vice President of AOL Time Warner and the Fox Broadcasting Company. The podcast discusses the current state of Alzheimer's research and the potential impact of CMS guidance requiring confirming clinical trials for new treatments targeting Amyloid plaques in its prevention. We also highlight a growing consensus of concern surrounding CMS' current guidance as unintended consequences will likely be detrimental to future therapy developments in high unmet medical need areas.  The FDA's accelerated approval pathway itself is now also at risk as therapies developed for high unmet medical needs have historically utilized this FDA-approved pathway. The views expressed in the podcast are purely those of Vital Transformation LLC and our guest, George Vradenburg.  While Biogen commissioned and funded Vital Transformation's recent report on CMS' impact on Draft National Coverage Determination on R&D investments, Biogen did not participate in the content creation. See omnystudio.com/listener for privacy information.

Greg O'Brien was 59 years old when diagnosed with early-onset Alzheimer's disease, unmasked by doctors after suffering a serious head injury. The award-winning  journalist, husband, and father of three, lost his mother, father, paternal grandfather, and paternal uncle to Alzheimer's.Greg learned from his beloved mother, Virginia, what it means to truly live with Alzheimer's, and it was her inspiration that prompted him to write and speak openly about his own diagnosis.  Ever since, Greg has been chronicling his thoughts, addressing medical conferences and Alzheimer's support groups around the world. In 2014, Greg, now 72, published a memoir called On Pluto: Inside the Mind of Alzheimer's, which won the 2015 International Book Award for Health.  The memoir is the first book written by an investigative reporter embedded inside the mind of Alzheimer's, chronicling the progression of his own disease.  Lisa Genova, author of the best-selling Alzheimer's novel, Still Alice, whose screen version won an Academy Award, wrote the foreword. “If you're trying to understand what it feels like to live with Alzheimer's…then you need to read this book,” Now, a new documentary feature film, Have You Heard About Greg? A Journey Through Alzheimer's with Faith, Hope and Humor, about Greg's life opens nationwide May 6, 2022.  (Written and coproduced by Greg O'Brien. Directed and coproduced by his childhood friend, Steve Ecclesine.)Powerfully told, HYHAG puts a human face on the most terrifying disease of Alzheimer's and other forms of dementia. Don and I spoke with Greg and Steve about the inspiration behind the documentary and why its message is so very important.Enjoy!xoxo Susie(Greg is a board member of UsAgainstAlzheimer's in DC, has served on the national Alzheimer's Association Early-Stage Advisory Group, and is an advocate for the Cure Alzheimer's Fund of Boston). Support the show (https://www.buymeacoffee.com/sscarter)

One of the stunning success stories of the Twentieth Century is longevity. Japan was the first super-aged country where more than one in five people are age 65 or older. Much of Europe joined in 2020 and the United States is expected to reach this milestone by 2030. BrainStorm host, Meryl Comer, and guest, Terry Fulmer, PhD, RN, FAAN, discuss care for older adults in the United States and around the world. Dr. Fulmer is President of The John A. Hartford Foundation and co-author of, Age Friendly Health Systems: A Guide to Using the 4Ms While Caring for Oder Adults. Listen as Dr. Fulmer provides insights into delivering age-friendly care to older adults, in all settings, using the four Ms: what matters, medication, mentation and mobility. You can help reduce stigma and misconceptions about dementia and empower others to speak freely and live life to the fullest. Share your experiences by email at story@usagainstalzheimers.org. The Story Project by UsAgainstAlzheimer's: Giving Voice to What Matters Most will feature the stories of people who are living with Alzheimer's and other dementias.Support the show (https://www.usagainstalzheimers.org)

With Meryl Comer, Author, Award-Winning Journalist, and Brain Health Advocate   The human brain is a wonderfully complex organ. But when brain nerve cells are damaged, it can lead to dementia. Dementia is a progressive medical condition that destroys brain function. Alzheimer's Disease, the most common cause of dementia, accounts for an estimated 60-80% of all patients. One of the most common symptoms, short-term memory loss, can cause a person to forget entire conversations, names of close family members, important dates, and recent events. Later, symptoms may include confusion, behavioral changes, and ultimately difficulty speaking, swallowing, walking, and even forgetting to eat. The changes in brain chemistry leading to dementia may begin as early as 20 years before symptoms occur. Diagnosis in the earliest stages of mild cognitive impairment can be difficult to recognize. After diagnosis, the challenge is to establish a treatment strategy that will provide for the patient's ongoing needs. While it's common to care for the patient at home in the early stages of the disease, caring for a loved one suffering from dementia can be a really frightening, exhausting, and often isolating experience for the caregiver.   My guest today, Meryl Comer, is a former award-winning journalist and TV producer. Her experience as a caregiver inspired her to write the New York Times bestseller, Slow Dancing With a Stranger: Lost and Found in the Age of Alzheimer's, about the challenges of caring for a loved one diagnosed with Alzheimer's. She's one of the co-founders of UsAgainstAlzheimer's and has testified before Congress for dementia research and disease prevention.   What You'll Hear on This Episode: What are the implications of longevity? How do we handle the cost of healthcare? What are some preventive ways to reduce risk? What are the differences in risk factors for men and women? What was Meryl's journalism career like? When did Meryl first notice dementia symptoms in her husband? How did Meryl's husband's dementia progress? When did Meryl begin taking care of her mother who also had dementia? How patients with Alzheimer's and caregivers become increasingly isolated. How genetics may impact early-onset Alzheimer's. How can today's technology help with early diagnostics? What are we learning from the current research and prevention studies?? How to donate to UsAgainstAlzheimer's. What made Meryl decide to write her book Slow Dancing With a Stranger? How did Meryl cope? How did Meryl track her husband and mother's health? Some additional tips Meryl has for caregivers.   Today's Takeaway: Currently two-thirds of all Alzheimer's patients worldwide are female. Dementia has become the leading cause of death for women in the UK and Australia; surpassing heart disease. In the U.S., women over the age of 60 are twice as likely to be diagnosed with Alzheimer's as they are with breast cancer. In women, early symptoms of dementia or Alzheimer's disease might be attributed to brain fog, fatigue, depression, or simply distraction due to hectic family and work schedules. Knowing your family history and paying attention to the early warning signs is critical for the proper diagnosis. The sad truth is that many women's health symptoms are often ignored, misunderstood, or even dismissed. As women, we might be told that mild cognitive impairment or forgetfulness is just our hormones or a normal sign of aging. But what if it's not the cause? It's also important that if you are the one caring for a family member or loved one with dementia you establish a strong support network. As a primary caregiver, the toll upon your own health and wellness can be really enormous. Make sure that you have others who can pitch in to help and that you connect with local caregiver groups with whom you can ask questions and share advice. It's important to note that not all symptoms of dementia lead to an Alzheimer's diagnosis; there are a variety of treatable conditions that may cause dementia-like symptoms such as untreated sleep apnea, Lyme disease, thyroid problems, or even vitamin deficiencies. But it's vitally important to consult a trained medical professional to properly evaluate the symptoms and determine the cause in order to begin treatment. Hopefully, soon we can all look forward to the day when we find a cure for dementia. Today is a gift; enjoy every moment of it and live the best you can by loving and giving back. I'm Florine Mark and that's “Today's Takeaway.”   Quotes: “Every three seconds a new case of dementia comes online.” — Meryl “It is challenging for everyone involved.” — Meryl “That age of 50‒70 is a really critical period for identifying risk and resilience.” — Meryl “You can reduce your risk by up to 40%.” — Meryl “At age 65, women have a one in six chance of developing Alzheimer's.” — Meryl Brought to You By: Gardner White Furniture   Mentioned in This Episode: UsAgainstAlzheimer's Slow Dancing With a Stranger Alzheimer's Drug Discovery Foundation (ADDF)

Lori La Bey talks with Michael Ellenbogen who was diagnosed with Young-Onset Alzheimer's Disease at the age of 49. He has been a mover and shaker in the industry and is interested in motivating those living with dementia to raise their voices and reduce the stigma surrounding the disease. Michael also wrote about his journey with the disease in his book entitled “From the Corner Office to Alzheimer's.”  GeorgeVradenburg and his late wife Trish, Co-founded UsAgainstAlzheimer's in October of 2010.  From the get go, they positioned themselves as a primary go to organization.  They listen to the needs of the people, the industry at large, and have carved out a deep niche with astounding accomplishments.  George is the Chairman of UsAgainstAlzheimer's. Contact UsAgainstAlzheimer's Website Michael Ellenbogen's Book - “From the Corner Office to Alzheimer's” Contact Lori La Bey  or visit www.AlzheimersSpeaks.com Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

The conversation about dementia and brain health can be a difficult one in different communities. BrainGuide by UsAgainstAlzheimer's is a first-of-its-kind platform that empowers people with knowledge and resources to take the best next steps in managing their own or a loved one's brain health. Brooks Kenny speaks with Dr. Neelum Aggarwal and host Dr. Chyanne Brown about the BrainGuide's success in the year since its creation. Mentioned In This Episode BrainGuide https://mybrainguide.org UsAgainstAlzheimer's https://www.usagainstalzheimers.org

The journey to a dementia diagnosis for millions of people and their families is fraught with the stigma of a disease currently with no cure. BrainStorm host, Meryl Comer, and guest, Deborah Kan, discuss the early stages of the Alzheimer's journey, the devastating diagnosis, and the realities of what comes next. Deborah Kan is a journalist and former editor for The Wall Street Journal Asia and Founder of Being Patient, a health platform solely dedicated to covering Alzheimer's disease. UsAgainstAlzheimer's offers BrainGuide, a platform to help you or a loved one test your memory with customized support resources. Learn more at mybrainguide.org.You can help reduce stigma and misconceptions about dementia and empower others to speak freely and live life to the fullest. Share your experiences by email at story@usagainstalzheimers.org. The Story Project by UsAgainstAlzheimer's: Giving Voice to What Matters Most will feature the stories of people who are living with Alzheimer's and other dementias.Support the show (https://www.usagainstalzheimers.org)

The Centers for Medicare and Medicaid Services (CMS), the federal health insurance program for people 65 plus, announced its decision to deny covering Biogen's Aduhelm and all future anti-amyloid treatments under what is known as a Coverage with Evidence Development (CED).  What does this first-round decision mean? BrainStorm host, Meryl Comer, and guest, Stephanie Monroe, Executive Director of AfricanAmericansAgainstAlzheimer's and Co-Director of the Center for Brain Health Equity discuss the underlying issues that she calls discriminatory, particularly for communities of color.  Russ Paulsen, Chief Operating Officer at UsAgainstAlzheimer's, offers a statement on why UsAgainstAlzheimer's opposes the CMS decision and provides a statement explaining what this means for those living with Alzheimer's. The proposed National Coverage Determination is open to public comment for 30 days (until Feb 9). A final decision will be announced in April. Support the show (https://www.usagainstalzheimers.org)

This SPECIAL EDITION of BrainStorm gives voice to those living with dementia. Hear from three individuals: journalist, Greg O'Brien, The Very Reverend Tracey Lind, and advocate for the Latino Community, Daisy Duarte. Each refuse to let their diagnosis or risk for Alzheimer's define them and have become their own best advocate for change. This special episode celebrates the 5th anniversary of UsAgainstAlzheimer's A-LIST, an online community of 10,000—where people with Alzheimer's disease, other dementias, or mild cognitive impairment, as well as family caregivers and people interested in brain health—come together to research the experience of living with this disease and caring for a loved one. We call it the science of us. Hear host, Meryl Comer, and guest, Virginia Biggar, Executive Director of Communities, discuss the A-LIST data and what matters most to the Alzheimer's community. Join the A-LIST at AList4research.org.Support the show (https://www.usagainstalzheimers.org)

Alzheimer's disease and other dementias disproportionately affects women, African Americans and Latinos. In fact, women are twice as likely to develop the disease as men. Twenty percent of Americans living with the disease are African Americans and Latinos are 1.5 times more likely to be diagnosed than non-Latino whites. It is important for professionals to understand the disparities that exist among these subsets of the population. Join this webinar to learn more on this topic from a guest speaker with UsAgainstAlzheimer's who will discuss how communities and healthcare systems can work together to promote brain health equity for all communities, including healthcare system readiness, improved access to research and preventive health services.UsAgainstAlzheimer's (UsA2) is a disruptive advocacy and research-focused organization that is pushing for expanding treatments and speeding the search for a cure for Alzheimer's disease. UsA2 works to ensure that all communities have their voices heard through various networks and initiatives including WomenAgainstAlzheimer's, LatinosAgainstAlzheimer's and AfricanAmericansAgainstAlzheimer's. Presenters:Stephanie Monroe is Director of Equity and Access and Executive Director of AfricanAmericansAgainstAlzheimer's, a network of UsAgainstAlzheimer's, and the first national network created to raise awareness of the impact of Alzheimer's health disparities on communities of color and women, the need for greater minority participation in clinical trials and the importance focusing on brain health and Alzheimer's risk reduction in all communities. Monroe is an attorney with three decades of federal public policy experience, including serving as Assistant Secretary of Education for Civil Rights. She also was Chief Counsel of the U.S. Senate Committee on Health, Education, Labor and Pensions, and Staff Director of the Senate Subcommittee on Children and Families.Jason Resendez is the Director of the UsAgainstAlzheimer's Center for Brain Health Equity and head of the LatinosAgainstAlzheimer's Coalition. He is the co-author of “Latinos & Alzheimer's Disease: New Numbers Behind the Crisis,” a seminal report released with the USC Roybal Institute on Aging, and contributor to the NIA's National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research. Prior to UsAgainstAlzheimer's, Resendez held senior positions at UnidosUS and LULAC National Educational Service Centers, Inc. He is a Google Next Generation Policy Leader, an Aspen Ideas Health Fellow, and serves on the boards of the Youth Movement Against Alzheimer's and Consumers for Quality Care.Part of the Empowering Professionals in Aging series Presented by Home Instead, Inc., franchisor of the Home Instead® network.

UsAgainstAlzheimer's newly-released tool, BrainGuide, may seem like a simple questionnaire, but the project highlights a growing movement to make Alzheimer's disease research and resources accessible to a broader range of communities. Released in 2021, BrainGuide is a one-of-a-kind resource that provides information about Alzheimer's disease in English and Spanish through online and telephone questionnaires. Dr. Maria Mona Pinzon, a physician-scientist at the University of Wisconsin School of Medicine and Public Health and a consultant on BrainGuide, joins the podcast to discuss the impacts this project has had on educating the Latinx community about Alzheimer's disease. Discussing the barriers and risks that the Latinx community face surrounding brain health, the ways to connect with the community through research, and her experience working on BrainGuide, Dr. Pinzon highlights the importance and impacts of community-tailored research and resources.  Guest: Maria Mona Pinzon, MD, MS, University of Wisconsin School of Medicine and Public Health Episode Topics 1:17 - How did you get into this field of an aging population and people living with dementia? 6:12 - Is the idea of Alzheimer's disease and dementia discussed within the Latinx community in general? 7:38 - Latinx individuals are 1.5 times more likely to develop dementia. Is there research that can explain this higher risk? 9:53 Tell us about this tool, the Spanish-Language BrainGuide, some of the resources it offers, and why it is important to make it available to Spanish speakers. 12:47 - What's something you learned from this experience that surprised you? 14:14 - What are the barriers Latinx people face in learning about brain health, dementia, and getting involved in research? 18:25 - What strategies do you suggest to improve the connection between researchers and the Latinx community as well as recruitment into research? 20:06 - When thinking about education and raising awareness, what topics are most important right now for the Latinx community? 21:58 - What do you do in your personal life to keep your brain healthy?  Show Notes Learn more about the Spanish-Language BrainGuide, its questionnaire, and other resources on their website. To fill out the questionnaire, you can find it digitally on their website (mybrainguide.org) or complete it over the phone by calling or texting 855-272-4641. Learn more about Dr. Mora Pinzon at her bio on the Wisconsin Alzheimer's Institute website.

Are we ready to end Alzheimer's? Hell no. That is the view of George Vradenburg, chairman and co-founder of UsAgainstAlzheimer's, as he talks about the progress made to end Alzheimer's during his opening remarks of our 2021 National Alzheimer's Summit.But he's not giving up and neither is UsAgainstAlzheimer's. Hope is finally here in the fight against Alzheimer's disease, but more work remains before we are ready to end this disease. In this episode of BrainStorm, listen to George Vradenburg's assessment of where we are and where we need to be in this fight. Hear stories from care partners and those living with the disease about the value of research and how their needs and insights guide UsAgainstAlzhiemer's advocacy with policymakers. BrainStorm by UsAgainstAlzheimer's airs on the first and third Tuesday of each month. Support the show (https://www.usagainstalzheimers.org)

In this week's Kaleidoscope, we discuss a report from the Alzheimer's Association finding that many Black, Asian, Hispanic and Native American caregivers say they've faced discrimination and language barriers when seeking help for friends or family with Alzheimer's. Their top concern is that providers don't listen to what they are saying because of their race. Allison speaks with Stephanie Monroe, director of African Americans Against Alzheimer's, which is part of UsAgainstAlzheimer's.org, about the problem. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Alzheimer's disease and related dementias impact more than 6 million families, with 15 million projected to be affected by 2050. Although we're learning that it is possible to reduce the risk of dementia and slow the rate of cognitive decline, we do not yet have a national effort focused on prevention. Kelly O'Brien from UsAgainstAlzheimer's and Dr. David Hoffman of Maria College and the National Association of Chronic Disease Directors talk about why we need a national dementia prevention goal, and how public-private partnerships can advance the fight against Alzheimer's and related dementias.Hosted by: Leanne Clark-Shirley, PhD, Vice President, Programs & Thought Leadership at the American Society on Aging with Peter Kaldes, President & CEO of the American Society on AgingGuests:Kelly O'Brien, Executive Director, Brain Health Partnership, UsAgainstAlzheimer'sDavid Hoffman, DPS, CCE, Associate Dean for Academic Initiatives and Government Affairs, Maria College, additional faculty appointments with Alden March Bioethics Institute at Albany Medical College and University at Albany School of Public Health and Associate at Large Director, National Association of Chronic Disease DirectorsResources:A Shared National Goal to Reduce Dementia Prevalence Call for a National Dementia Prevention GoalDementia prevention, intervention, and care: 2020 report of the Lancet Commission Public members of the advisory council on Alzheimer's research, care and services: 2020 recommendations

Today we will talk to the Founders of UsAgainstAlzheimer's. During the first hour we will talk with George and Trish Vradenburg and learn the “why” behind the organization and what their goals are. The second hour we will be talking with some of their subgroup leaders who are making a big impact around the globe: Jason Resendez directs the LatinosAgainstAlzheimer's Network & Coalition, Drew Holzapfel serves as the Executive Director of The Global CEO Initiative on Alzheimer's Disease, Jill Lesser is President of WomenAgainstAlzheimer's and Ginny Biggar directs the Patient-Caregiver and Faith Initiatives at UsAgainstAlzheimer's. http://www.usagainstalzheimers.org/ Additional Resource Information: Alzheimer's Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Join The Purple Angel Project: https://www.alzheimersspeaks.com/purple-angel-project Check out Audible www.audibletrial.com/SOCIAL Check out Fresh Books www.gofreshbooks.com/aliveSupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.