Podcast appearances and mentions of kevin schaefer

In episode 148, host Kevin Schaefer talks with Ashley Fox and Madeline Engel from California. Ashley has SMA, and Madeline became her best friend and caregiver when they were in college. They discuss the nuances of friendship and caregiving, plus touch on confronting internalized ableism and navigating graduate school and careers. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

The primary focus of this podcast episode is a nostalgic exploration of the iconic animated series "Hey Arnold!" hosted by Elizabeth Clyde, affectionately known as Liz, and Kevin Schaeffer. As 90's kids, both hosts reflect on the profound impact that this show, with its unique cast of characters and rich storytelling, had on their childhoods. They delve into the complexities of the characters, notably Arnold's unconventional upbringing and the diverse community that shaped his experiences. Liz and Kevin discuss how "Hey Arnold!" tackled significant themes such as bullying, mental health, and the importance of community, all while maintaining a light-hearted yet poignant narrative. This episode serves as a testament to the show's enduring legacy and its ability to resonate with audiences even decades later.A profound exploration of childhood nostalgia manifests vividly in a discussion centered around the iconic animated series, 'Hey Arnold!'. The hosts, Kevin Schaefer and Liz Clyde, engage in a rich tapestry of memories that encapsulate both the cultural and social significance of the show. As they delve into their personal experiences with the series, they articulate its unique representation of urban life through the lens of a diverse cast of characters, each grappling with their individual struggles and triumphs. The nostalgia is palpable as they reflect on the show's ability to tackle complex themes such as bullying, community, and the intricacies of growing up in a non-traditional family structure, showcasing the show's profound impact on their formative years. The discussion further unearths the nuanced character arcs, particularly focusing on Arnold's journey as he navigates friendships and adversities within his community. The hosts highlight key episodes that resonate deeply, such as those that illustrate the importance of empathy and personal growth. The layered narratives, interwoven with humor and poignant lessons, serve as a testament to the series' lasting legacy. Liz and Kevin's dialogue ultimately elevates 'Hey Arnold!' beyond mere entertainment, positioning it as a cornerstone of childhood for many who grew up in the 90s, and a show that continues to resonate with audiences today.Takeaways: In this episode, we explore the profound impact of 90s cartoons, particularly 'Hey Arnold!', on our formative years as children. Our discussion highlights the unique character dynamics in 'Hey Arnold!', emphasizing the importance of community and friendships. We delve into the show's ability to address complex themes such as bullying, mental health, and social anxiety in a manner that resonates with both children and adults. The nostalgic reflection on our childhood viewing experiences underscores the significance of these animated series in shaping our understanding of diverse life experiences. .We discuss all this and more in this one! Join in the conversation with us on Discord now!.Support our show on Captivate or Patreon, or by purchasing a comfy T-Shirt in our store!.Check out other episodes with Kevin Schaeffer:https://player.captivate.fm/collection/84fd7d06-cf1f-48e5-b358-09a01c5a6bc9.Listen to all of Liz's episodes:

In episode 147, host Kevin Schaefer talks with Brandi Lewis from Birmingham, Alabama. A blood disorder awareness educator, TEDx speaker, writer, and nonprofit founder, Brandi is passionate about helping others diagnosed with chronic illnesses. She herself has been diagnosed with aplastic anemia and PNH, the symptoms of which began in 2009. Her nonprofit, Brandi's Blessings, was created to spread awareness and support blood disorder patients. She notes that her greatest accomplishment is having saved three lives by encouraging people to register to become bone marrow donors. Brandi is a dog lover of a labradoodle, Milo, and thinks laughter is the best medicine. Follow Brandi on Instagram at @_brandilewis_! Brandi's website: www.brandilewis.com Brandi's column: https://pnhnews.com/category/columns/from-fear-to-fighter-a-column-by-brandi-lewis/ ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

Join us for an exciting "What's News" episode of Systematic Geekology, where we dive into the latest happenings in the world of pop culture and geek news. We kick things off by discussing the highly anticipated upcoming projects in the Marvel Cinematic Universe, including the new animated series "Your Friendly Neighborhood Spider-Man" and the much-awaited "Captain America: Brave New World." Kevin shares his excitement about getting back into "Severance" as it premieres its second season, while we also explore the buzz surrounding "Squid Game" season two and the evolving landscape of Star Wars films. With insights on the creative directions these franchises are taking, we reflect on the impact of director choices and how they shape beloved characters like Ryan Gosling's potential role in a new Star Wars movie. Tune in for a lively discussion filled with enthusiasm for the latest in geek culture, recommendations, and our thoughts on what's coming next!A lively and insightful conversation unfolds as Kevin Schaefer and Evan Garcia navigate the expansive landscape of current geek culture, touching on the latest developments in the Marvel Cinematic Universe (MCU) and the return of captivating series like Severance. The hosts enthusiastically unpack the upcoming Spider-Man animated series, emphasizing its fresh take on the beloved character's origins and the intriguing mentorship dynamic with Norman Osborn. They reminisce about the rise of geek culture, noting how franchises that were once niche have become mainstream, drawing in diverse audiences and sparking conversations across generations. Garcia shares his personal engagement with Pokémon Go, illustrating how shared experiences in gaming continue to foster community and nostalgia.The duo then pivots to Severance, exploring its unique narrative structure and ethical implications surrounding work-life separation. They delve into the show's ability to blend dark humor with profound commentary on corporate culture, discussing how the characters grapple with their dual identities. Schaefer's excitement for the series' second season is palpable as he hints at the new directions the plot may take, teasing listeners with the complexities that await. This segment of the episode serves as a reflection on contemporary work dynamics, inviting the audience to ponder their own relationship with work and identity. The episode culminates with a discussion on the anticipated Squid Game Season 2, where Garcia provides insights into its evolving narrative and character arcs, keeping fans on the edge of their seats for the next installment. Through humor and thoughtful exploration, the hosts create an engaging dialogue that resonates with both casual viewers and dedicated fans of the genre.Takeaways: Kevin and Evan discuss the latest developments in the Marvel Cinematic Universe, including upcoming movies and shows. Evan shares his excitement about getting back into Pokemon Go after a long hiatus. Kevin recommends checking out the Batman prose novel 'Batman Resurrection' for its unique perspective. The podcast highlights the anticipation for Severance season two and Squid Game season two. Ryan Gosling's involvement in a potential Star Wars film has fans intrigued and hopeful. The hosts reflect on how current pop culture trends demonstrate the evolution of geek culture. .We discuss all this and more in this one! Join in the conversation with us on Discord now!.Support our show on Captivate or Patreon, or by purchasing a comfy T-Shirt in our

In episode 146, host Kevin Schaefer talks with TJ Wall from Texarkana, Texas. TJ is working on his master's in education at Texas A&M University, and he hopes to become a high school football coach. He talks about growing up with SMA, his love of sports, and his future aspirations. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

In episode 145, host Kevin Schaefer talks with Carrie Manriquez from Sacramento, CA. Carrie is an elementary school principal, and her 24-year-old son Ryan has SMA type 2. She talks about her experiences as a parent and caregiver, connecting with the SMA community, and helping Ryan transition to adulthood. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

In episode 144, host Kevin Schaefer talks with Doug McCullough from central New Jersey. The author of “A Billion People in the Shadows,” a new book about understanding disability, Doug previously worked at Johnson & Johnson Pharmaceuticals and has a background in public speaking. He talks about growing up with SMA type 3, navigating employment with a disability, and advocating for an inclusive society. Doug's book: https://publishyourpurpose.com/books/a-billion-people-in-the-shadows-the-ultimate-1-hour-guide-to-understanding-disability/ ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 143, host Kevin Schaefer talks with Cory Lee from Lafayette, Georgia. A renowned expert on disabled traveling, he has visited all seven continents from his wheelchair. He runs the Curb Free With Cory Lee blog and takes part in speaking engagements around the world. Join the two as they discuss growing up with SMA, Cory's travel origins, and his hopes for the future of accessible travel. Cory's Instagram: https://www.instagram.com/curbfreecorylee/ Cory's website: https://curbfreewithcorylee.com/ ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

Overview:  On today's podcast, host Lori Boll speaks with Kevin Schaefer who is currently the Director of Inclusive Practices/Supporting Inclusive Practices (SIP) project through the El Dorado County Office of Education Sacramento, California. In this role, Kevin works to improve educational outcomes for students with disabilities through the provision of high-quality leadership and support to the County and throughout the state. Lori and Kevin discuss barriers to inclusion for students with disabilities, and how his organization works with schools to shift culture and mindsets to support meaningful inclusion.  Connect Supporting Inclusive Practices (SIP) Instagram Resources From Today's Show: National Center for Inclusion Toward Rightful Presence

In episode 142, host Kevin Schaefer talks with Savannah and Will Huff from Thomasville, Georgia. Savannah, who has SMA type 3, met Will in 2018. Listen in as they discuss their marriage, careers, and the intersection of married life and caregiving. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 141, host Kevin Schaefer talks with Quinn Bucher (he/they) from Athens, Ohio. A student at Earlham College studying theater, he talks about growing up in an arts-oriented household, making theater inclusive for disabled students, and the intersectionality of being trans and having SMA. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

Note: This podcast includes thoughts about suicide. If you are struggling with thoughts of suicide, please contact the Suicide Prevention Lifeline in the U.S. (988, or 988lifeline.org, available 24/7), Samaritans in the U.K (samaritans.org), or Samaritans of Singapore in Singapore (sos.org.sg). In episode 140, host Kevin Schaefer talks with Lucy Trevino from Chicago, Illinois. Lucy is passionate about academia and advocacy, and she volunteers for the organization Chicago Scholars. She discusses living with SMA Type 3, her familial relationships, and the importance of disability inclusion.

In episode 139, host Kevin Schaefer talks with Dianna Warren from Canton, Ohio. Dianna is an ambassador for Ms. Wheelchair USA, and for 32 years she ran a disability bowling league. She discusses these experiences, living with SMA Type 3, and her marriage of 44 years. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

In episode 138, host Kevin Schaefer talks with Nolan, who lives with SMA, and Blake Shofner from Princeton, Illinois. The brothers discuss their dynamic as siblings and business partners, as they are the founders of Mullet Bros Co. They also discuss the importance of humor in their lives and how Nolan's SMA has impacted them. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums.

In episode 137, host Kevin Schaefer talks with Jared Wayland from Ontario. Jared discusses growing up with SMA type 3 and becoming a husband and father. He also talks about his passion for music and graphic design and shares advice about building confidence with SMA. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

In episode 136, host Kevin Schaefer talks with returning guest Shaniqua Granby as she shares life updates and discusses how she navigates struggles and embraces community. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 135, host Kevin Schaefer talks with Ryan Kinnear from Glendale, Arizona. An avid fisherman and outdoor enthusiast, he uses assistive technology to pursue his passions. Ryan talks about using this technology, growing up with SMA, and managing daily life. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

In episode 134, host Kevin Schaefer talks with Dr. Edward Smith from Hillsborough, North Carolina. Dr. Smith spent the majority of his career as a clinical neurologist, and Kevin was one of his longtime patients. They talk about the state of SMA research and the work Dr. Smith is doing now. SMA News Today contributor Michael Morale also joins to talk with Dr. Smith about his treatment experiences. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

In episode 133, host Kevin Schaefer talks with Rebecca Mulhall from Cleveland, Ohio. Rebecca has three kids, and her youngest two are twins with SMA. Her son with SMA also has Down syndrome. Rebecca talks about the intersection of these disabilities, her family's daily life, and her advice for other parents in the SMA community. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums.

Hosts Will Rose, James Demmel, and Kevin Schaefer discuss the Ahsoka series and the upcoming Loki series coming to Disney+ with guest, Daniel Sigmon, in another "What's news?!".Is Ahsoka in the World Between Worlds? How old is Ahsoka in TCW? Is the Ahsoka show a limited series? Is Ahsoka Season 2 confirmed? Was that the end of Ahsoka? Is Ahsoka on Mortis? Will Baylan Skoll be recast? What is the release date of Loki Season 2? Will Jonathan Majors be in Loki Season 2? Where can I watch Loki Season 2? We discuss it all in this one! Join in the conversation with us on Discord now!.Support our show on Captivate or Patreon, or by purchasing a comfy T-Shirt in our store!.Check out the rest of our Whats News episodes:https://player.captivate.fm/collection/5abf15a7-d441-4638-8a4a-66ccf85e3343.Listen to all of James' episodes here:https://player.captivate.fm/collection/b8aedf67-2860-4407-bcf1-5c279366ee4c.Hear the other episodes Kevin is on here:https://player.captivate.fm/collection/84fd7d06-cf1f-48e5-b358-09a01c5a6bc9.Check out all of Will's episodes:https://player.captivate.fm/collection/4559ab55-4b6a-4432-b0a7-b61540df8803.Don't miss any of our Star Wars episodes:https://player.captivate.fm/collection/8a69b978-b30c-4515-9e5d-a38a84cc367f.Check out all of our MCU talks:https://player.captivate.fm/collection/fb519d38-2d9b-4f82-b041-81b81613543c.Want to create live streams like this? Check out StreamYard: https://streamyard.com/pal/d/4893264078700544Mentioned in this episode:Easily subscribe to the show on your platform of choice!https://systematic-geekology.captivate.fm/listenAnazao Ministries Podcasts - AMP NetworkCheck out other shows like this on our podcast network! https://anazao-ministries.captivate.fm/

In episode 132, host Kevin Schaefer talks with Collin Pollock from Garden Grove, California. Collin and his wife, Kyla, run a barbeque sauce business called WheelyQ. He discusses becoming a business owner, growing up with SMA, and being a husband and father. ================================ Collin's website: https://wheelyq.com/ ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums.

In episode 131, host Kevin Schaefer talks with Candis Welch from Los Angeles, California. A disability advocate, DEI practitioner, and consultant, Candis won the 2023 Ms. Wheelchair California competition. She talks about growing up with SMA, the importance of representation, and how she's cultivated an independent life. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 130, host Kevin Schaefer talks with Andrew Cherico from Orlando, Florida. Andrew is a sophomore at the University of Central Florida and is studying sports journalism. He talks about growing up with SMA, shifting his mindset as a teenager, and connecting with others in the SMA community. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums.

Why do the gods want to be like us, humans? Christian Ashley is joined by guest host, Kevin Schaefer, to discuss the cosmology of DC Comics! What is the difference Marvel and DC? How many DC Comics characters are there? Who is powerful god in DC? What gods does DC have? Who is the strongest Greek god in DC? How powerful is God in DC? Is God the most powerful character in DC? What is Lucifer's name in DC? What is Lucifer's personality DC Comics? Do angels exist in the DC Universe? Was an angel a member of the Justice League? How powerful is zauriel dc? We discuss it all in this one! Join in the conversation with us on Discord now!.Support our show on Captivate or Patreon, or by purchasing a comfy T-Shirt in our store!.Check out our full episode discussing what would happen if Constantine was a professor at Hogwarts:https://player.captivate.fm/episode/c8c2fc6c-f599-4088-b806-759b29dc68dd.Check out our series on origins and cosmologies:https://player.captivate.fm/collection/5f1fafc8-78ed-47a0-8ff7-61267dc68aa5.Check out our other comicbook episodes:https://player.captivate.fm/collection/dfb78fea-afd0-4127-81d3-33919adc1e8e.Check out other episodes with Christian Ashley:https://player.captivate.fm/collection/ebf4b064-0672-47dd-b5a3-0fff5f11b54c.Check out other guest episodes:https://player.captivate.fm/collection/0d46051e-3772-49ec-9e2c-8739c9b74cdeMentioned in this episode:Anazao Ministries Podcasts - AMP NetworkCheck out other shows like this on our podcast network! https://anazao-ministries.captivate.fm/Try Zencastr for your podcast!Use my special link (https://zen.ai/PonrDFNQi6ic0uw2d3C4pKsw5T_ojgHAKLOTPsxH1co) to save 30% off your first month of any Zencastr paid plan. Or, use the code SYSTEMATICGEEKOLOGY at checkout!ZencastrTheology Beer CampJoin some of our hosts in Springfield, Missouri at Theology Beer Camp! With our code (GEEKOLOGYGODPOD) you will get $25 off and can come hang out with our hosts, learn from world leading theologians, and your drinks for the weekend are covered with admissions too! https://homebrewedchristianity.lpages.co/theobeercamp23/ https://bit.ly/godpods23Theology Beer Camp 2023Easily subscribe to the show on your platform of choice!https://systematic-geekology.captivate.fm/listen

We're back with another What's News! This time, host Joshua Noel leads our conversation with two guests, Kevin Schaefer and Adam Behr, discussing the new Indiana Jones film - "The Dial of Destiny", as well as Marvel's "Secret Invasion" on Disney plus, and more! Who is Captain Pike's girlfriend in Strange New Worlds? Is Laan Noonien Singh related to Khan? What did Una Chin-Riley do? What is Secret Invasion MCU about? Who is the spider woman in Secret Invasion? Is the dial of destiny a real artifact? Is Shia LaBeouf in Dial of Destiny? We discuss it all in this one! Join in the conversation with us on Discord now!Mentioned in this episode:Try Zencastr for your podcast!Use my special link (https://zen.ai/PonrDFNQi6ic0uw2d3C4pKsw5T_ojgHAKLOTPsxH1co) to save 30% off your first month of any Zencastr paid plan. Or, use the code SYSTEMATICGEEKOLOGY at checkout!ZencastrAnazao Ministries Podcasts - AMP NetworkCheck out other shows like this on our podcast network! https://anazao-ministries.captivate.fm/Easily subscribe to the show on your platform of choice!https://systematic-geekology.captivate.fm/listenTheology Beer CampJoin some of our hosts in Springfield, Missouri at Theology Beer Camp! With our code (GEEKOLOGYGODPOD) you will get $25 off and can come hang out with our hosts, learn from world leading theologians, and your drinks for the weekend are covered with admissions too! https://homebrewedchristianity.lpages.co/theobeercamp23/ https://bit.ly/godpods23Theology Beer Camp 2023

In episode 129, host Kevin Schaefer talks with Rylie Erbacher and her mom, Stephanie, from Iowa. Rylie has SMA, and she was recently recognized as one of 10 artists from around the country honored in Washington, D.C., for her accomplishments as a Rare Artist, an artist living with a rare disease. She and Stephanie discuss this journey, as well as what their daily lives look like. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

We continue our series focusing on our annual theme of origins and the cosmology of our favorite fandoms, this time we are talking about the cosmology of the Marvel Universe! Hosts Will Rose and Josh Rosengrant are joined by special guest, Kevin Schaefer! Who are the celestials? Why are Galactus and Franklin Richards the last beings in our universe? Who are Knull, the Beyonder, and the Eternals? What part does Venom play in Marvel's cosmology? What does it say that the Hebrew Bible shows a world created out of love when so many other philosophies portray a world created from a war of the gods like in Marvel? We discuss it all in this one! Join in the conversation with us on Discord now!Mentioned in this episode:Try Zencastr for your podcast!Use my special link (https://zen.ai/PonrDFNQi6ic0uw2d3C4pKsw5T_ojgHAKLOTPsxH1co) to save 30% off your first month of any Zencastr paid plan. Or, use the code SYSTEMATICGEEKOLOGY at checkout!ZencastrAnazao Ministries Podcasts - AMP NetworkCheck out other shows like this on our podcast network! https://anazao-ministries.captivate.fm/Theology Beer CampJoin some of our hosts in Springfield, Missouri at Theology Beer Camp! With our code (GEEKOLOGYGODPOD) you will get $25 off and can come hang out with our hosts, learn from world leading theologians, and your drinks for the weekend are covered with admissions too! https://homebrewedchristianity.lpages.co/theobeercamp23/ https://bit.ly/godpods23Theology Beer Camp 2023Easily subscribe to the show on your platform of choice!https://systematic-geekology.captivate.fm/listen

In episode 128, host Kevin Schaefer talks with Jenna Coburn from Palm Springs, California. Jenna is a social media and marketing manager for Access Medical, and she has SMA. She talks about her family life, how she started her career as a teenager, her relationship with her girlfriend, and the intersectionality of her LGBTQIA+ and disability identities. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

In episode 127, host Kevin Schaefer talks with Kevan Chandler, founder of the nonprofit organization We Carry Kevan. In 2016, Kevan used an adaptive backpack so that his friends could carry him on a trip across Europe. This adventure formed the basis of his nonprofit. Kevan is now an author, speaker, and world traveler. He has SMA type 2, and he currently lives in Indiana with his wife, Katie.

In episode 126, host Kevin Schaefer talks with Janelle Fiesta and Antoine Vuong from Honolulu, Hawaii. They are an interabled couple who met when they were both in high school. Janelle shares her experiences living with SMA and Antoine talks about being her partner. They also discuss going to the 2022 Cure SMA conference in Anaheim, California. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 125, host Kevin Schaefer talks with Brooklyn and Keanna Nichols from Athens, Alabama. Brooklyn is a middle schooler with SMA who co-authored a children's book called “A Do Nothing Day” with her mom's cousin. She and her mom talk about inclusivity, living with SMA, and the origins of the book. ================================ To order a copy of the book, email Keanna at robertnkeanna@icloud.com. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 124, host Kevin Schaefer talks with Steve and Brittany Bingman from Mount Juliet, Tennessee. Steve is an administrative officer at the U.S. department of veteran affairs, and he lives with SMA. Brittany is Steve's wife, and she is a licensed social worker. They discuss their marriage and family, their daily lives, and getting involved with the SMA community. ================================ Steve's 31 Days of SMA story: https://smanewstoday.com/31-days-of-sma/31-days-sma-superior-motivational-attitude/ Brittany's 31 Days of SMA story: https://smanewstoday.com/31-days-of-sma/31-days-sma-being-wife-mom-caregiver-spouse/ ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 123, host Kevin Schaefer talks with returning guests LaMondre Pough and Gabrielle Runyon, two Black Disabled advocates. In recognition of Black History Month, LaMondre and Gabrielle share their experiences growing up with SMA, the intersectionality of their identities, and the work they're doing now. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 122, host Kevin Schaefer talks with three of his coworkers from BioNews Inc., the parent company of SMA News Today. Brittany Foster is BioNews' HR Coordinator, and she lives with pulmonary hypertension. Brad Dell is the Director of Community Content, and he lives with cystic fibrosis. Matt Lafleur is the Culture Coordinator, and he lives with Friedreich's ataxia. In anticipation of Rare Disease Day 2023, these advocates share their experiences, pitfalls, and triumphs living with their respective conditions. ================================ Brittany's column: https://pulmonaryhypertensionnews.com/recharged-and-rewired-brittany-foster/ Brad's column: https://cysticfibrosisnewstoday.com/victorious-brad-dell/ Matt's column: https://friedreichsataxianews.com/little-victories-matthew-lafleur/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 121, host Kevin Schaefer talks with Patricia Panzarino, who goes by her musician name, Pidgie. Pidgie is a singer and songwriter from Cape Cod, Massachusetts, and she has SMA Type 2. She discusses growing up in a pre-ADA era, building her music career, and starting Evrysdi. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 120, host Kevin Schaefer talks with Dom Evans (he/they), LGBTQ and disability activist and filmmaker. Dom discusses his background, growing up with SMA, and how he became an activist. He also talks about his longtime partner and their relationship. Note: This podcast includes thoughts about suicide. If you are struggling with thoughts of suicide, please contact the Suicide Prevention Lifeline in the U.S. (988, or 988lifeline.org, available 24/7), Samaritans in the U.K (samaritans.org), or Samaritans of Singapore in Singapore (sos.org.sg). ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 119, host Kevin Schaefer talks with Chaz Hayden, a young adult author with SMA. Chaz's debut novel, The First Thing About You, tells the story of a 15-year-old boy with SMA named Harris who wants to reinvent himself. Kevin and Chaz discuss themes in the book, the personal experiences that influenced the story, and Chaz's advice for other writers. ================================ Chaz's website: https://www.chazhayden.com/ The First Thing About You: https://www.chazhayden.com/the-first-thing-about-you ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

In episode 117, host Kevin Schaefer talks with Delphine Andrews and Kevin Davis from North Carolina. Delphine has SMA and she began dating Kevin in early 2020. They discuss their careers, daily lives, and the nuances of their relationship. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Rock's experimental therapy, Apitegromab, and go over recent updates surrounding its clinical trial. Then they talk about how SMA affects the way people think about getting older. Michael, DeAnn, and Kevin share their thoughts on aging as adults with SMA. ================================ Apitegromab news story: https://smanewstoday.com/news/apitegromab-potential-ease-fatigue-aid-life-quality-topaz/ Forum discussion on aging and SMA: https://smanewstoday.com/forums/forums/topic/thoughts-on-aging/ Kevin's column: https://smanewstoday.com/columns/how-sma-affected-perspective-aging-disability/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, and she has SMA Type 3. She discusses going to law school, her faith and how it relates to her disability, and the advice she has for others with SMA. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with SMA Type 3. He discusses his journey toward entrepreneurship, his marriage and family life, and becoming connected to the SMA community. ================================ Jose's website: https://www.joseinspires.com/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband's youngest son, Anthony, has SMA type 0. She talks about her son's diagnosis, pursuing treatment, and how she and her family have adapted to life with SMA. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and his team recently won the national championship. He discusses his love of sports, having his brother as his primary caregiver, and starting his own financial business. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

Today we are joined by Kevin Schaefer with a conversation surrounding inclusion ⁠and systematic change. He provides educational support to schools and special education programs to improve inclusion processes and educational outcomes that encourage benefits for all students.    This episode will explore: - Systemic change in education  - Inclusion as a process  - How educational support provides beneficial outcomes for students  ⁠ Liked this episode? Rate, review, and share!   Want more? Follow me on: LinkedIn: @lindsaybethlyons  Instagram: @lindsaybethlyons Facebook Group: Time for Teachership   Follow Kevin:  Facebook- https://www.facebook.com/SIPInclusion/  Twitter- https://twitter.com/SIPInclusion  Website- https://www.sipinclusion.org/ SIP Resources Page- https://www.sipinclusion.org/what-we-do/resources/  Equity By Design- https://www.novakeducation.com/equity-by-design  Antiracism Design- http://castpublishing.org/books-media/antiracism-universal-design-learning/  Crip Camp- https://cripcamp.com/

In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media. She discusses moving away from home at a young age, becoming connected with the SMA community, and falling in love with her best friend from childhood. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media creator from New York City. Steven is also the founder and editor-in-chief of The Squeaky Wheel, an online disability satire publication. He discusses living with SMA, working for NBC, and disability representation in media. ================================ Steven's website: https://www.stevenverdile.com/ Steven's IG: https://www.instagram.com/stevenverdilecreative/ The Squeaky Wheel: https://the-squeaky-wheel.com/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 110, host Kevin Schaefer welcomes back to the podcast Ben Mattlin, an author and disability rights advocate. His upcoming book is called “Disability Pride: Dispatches from a Post-ADA World,” and is set to release on November 15, 2022. Ben discusses the evolution of this book, and what Disability Pride means to him. ================================ Pre-order Disability Pride: https://www.penguinrandomhouse.com/books/676271/disability-pride-by-ben-mattlin/ Ben's website: www.benmattlin.com ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 109, host Kevin Schaefer chats to several attendees from this year's Cure SMA conference in Anaheim, California. Ashley Fox, Ryan Manriquez, and Kyle Harris discuss reuniting after such a long time, connecting with other adults with SMA, and share their highlights from the conference. ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

In episode 108, host Kevin Schaefer talks with Logan Nantz from southern Indiana. Logan's daughter Hayden is two years old and has SMA. They discuss Logan family's story, as well as the news that Genentech recently approved Evrysdi for infants under the age of two months. ================================ Evrysdi story: https://smanewstoday.com/news-posts/2022/06/01/sma-treatment-evrysdi-gets-fda-approval-babies-under-2-months-old/ Logan's 31 Days of SMA story: https://smanewstoday.com/31-days-of-sma/2020/08/07/31-days-of-sma-logan-nantz/ ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

In episode 107, host Kevin Schaefer talks about mental health with LGBTQ+ and disability advocates. Panelists include Ali Ramos (she/her), licensed social worker; Sherry Toh (she/they), columnist for SMA News Today; and Hugo Trevino (he/him), who works in academia. They all share their experiences managing their own mental health and offer advice for others in disability and LGBTQ+ spaces. ================================ Ali's Work Facebook page: https://www.facebook.com/aliramostherapy Sherry's column: https://smanewstoday.com/wandering-the-lines-sherry-toh/ Hugo's Instagram: https://www.instagram.com/htrevin2/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com