Group of genetic disorders that mainly affect the bones
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4 episodes with brittle bone disease
2 episodes with brittle bone disease
2 episodes with brittle bone disease
2 episodes with brittle bone disease
Have you ever ignored shoulder pain, thinking it was just muscle soreness? In this eye-opening episode of Health Happy Life Podcast, I share the critical story of a 46-year-old woman whose "simple shoulder pain" turned out to be a heart attack - a wake-up call we all need to hear.This podcast is intended to be informational only. It is not a medical consultation, nor is it personalized medical advice. For medical advice, please consult your physician.As a board-certified kidney specialist and internal medicine physician, I break down several headline-making health stories that could affect you or your loved ones. We examine Tracy Morgan's unexpected health scare at the Knicks game, giving you practical tips to tell food poisoning from stomach viruses.The episode also tackles RFK Jr.'s concerns about toxic metals in baby formula through "Operation Stork Speed" - I'll teach you exactly what to look for on formula labels to protect your little ones. Plus, we celebrate Will Smith's inspiring $50,000 health challenge with Big Boy and explore Christina Applegate's powerful MS journey, including insights from her 30+ hospital visits.Whether you're worried about heart attack symptoms, dealing with chronic illness, or trying to make safer choices for your family, this replay offers clear, practical medical knowledge without the confusing doctor-speak. Your health matters to me - let's learn together.#HealthHappyLife #DrFrita #MedicalMondays #HeartHealth #ChronicIllnessHere are a few helpful resources to help on your journey to wellness:▶️ Subscribe so you will never miss a video.
Send us a textC4 Leaders – the ONLY nonprofit to utilize the pizza making process to create space for our companions to be seen, heard, and loved. We also write children's books, host this podcast, and use the most amazing handmade, hand-tossed, sourdough pizza to bring out the best in each other. Please check out PIZZADAYS.ORG to support our important work. Season 4 Episode #17 Katherine Klimitas is coming from Metairie, LA (inform, inspire, & transform)You can find via her website https://kakartnola.comAbout our guest: Artist, Story Teller, Public Speaker, Entrepreneur, Dog Lover, Hard Worker, Jeweler, and someone still yet defined. When Katherine was five, her mother gave her, her first watercolor set and Katherine's love for art was born. Fast forward a few years and Katherine was graduating from Loyola University New Orleans with a BA in graphic design and shortly thereafter began her art and design business. Katherine has published two books and has her work exhibited in many public entities, including the West Baton Rouge Museum of Art. Katherine was born with Osteogenesis Imperfecta, better known as Brittle Bone Disease. Katherine is 2 feet, 7 inches tall and by age 10, she had broken 500+ bones. Growing up with brittle bone disease, Katherine's life was always a little different from her able-bodied friends. Katherine was blessed to be born into a family of veterinarians and there was no way her parents were going to let her disease dictate her happiness. Her parents made her want to make something of herself, and she was going to be happy doing it—end of story.Currently, Katherine puts most of her energy into expanding her reach and capabilities as a watercolor artist and motivating others to contribute to their communities. Katherine, thanks for sharing your many gifts with people all over the world, for continuing to push yourself to be your best, and for being our guest on Life's Essential Ingredients. Welcome to the show!TOTD – “Some believe in destiny and some believe in fate, but I believe that happiness is something we create.” Sugarland song – Something MoreBuild a habit - to create intention - to live your purpose! In this episode:What was life like growing up?What are your life's essential ingredients?Why is GIVING BACK so important to you?The importance of family…Find Your SomethingLiving in Pain… what are some of your pain management tipsPerspective being 2'7”, lying down to work…I know you love MUSIC… dad inspired you (he passed) and love how it brings people together just like your art…Dogs…you have five…WatercolorsGraphic DesignPet PortraitsJewelryLegacy
In this episode, we review the high-yield topic of Osteogenesis Imperfecta / Brittle Bone Disease from the MSK section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets
In this episode, Reagan dives into some personal stories about how she learned to live more like Jesus from a little girl in a small African Village in Belize with Brittle Bone Disease. She describes how God meets us in our pain, never wastes the suffering and is with us through it all! If we know and believe the King is comimg back someday to wipe away every tear, how do we live our lives now ready for his return? Through His Word, God teaches us to live in obedience to his call with joy and holiness!This Episode is brought to you by Advanced Medicine AlternativesGet back to the active life you love through natural & regenerative musculoskeletal healing: https://www.georgekramermd.com/
Today, we're joined by Laytham Ford, who will share his experience living with Brittle Bone Disease, also known as Osteogenesis Imperfecta (OI). We'll dive into his journey, challenges, and insights as he navigates life with this condition. Laytham has an incredible story about meeting one of his idols, Steve-O from Jackass and receiving a tattoo from him. It was an absolute pleasure meeting Laytham and having a chat. Hosted on Acast. See acast.com/privacy for more information.
Katherine Klimitas was born with Osteogenesis Imperfecta, better known as Brittle Bone Disease. Despite this, she has created a design and art business that has been extremely successful. Learn more about how she uses physical limitations to still create the work and life she loves.Find Katherine's work at https://kakartnola.com/.Episode 447 How Brittle Bone Disease Made Katherine Klimitas A Better Designer_________ Love to create, design and craft? Have you always wanted to know how to turn your passions into profit? Carina's new book – Design Profit & Prosper will lead you down the path of making your dreams a reality. Get your copy today! https://www.designsuitecourses.com/designprofitprosper__________About Carina Gardner:Carina Gardner is a fabric designer, paper designer, and design educator who is passionate about helping other designers fulfill their creative dreams by teaching them her strategies for making money as a designer. She has a Ph.D. in Design and taught design at the University of Minnesota before starting Carina Gardner, Inc.Carina Gardner, Inc design brand has been featured in dishware, holiday decor, sewing patterns, and more. Her exclusive Design Suite Program helps creatives make money designing as they learn to design. Her programs include Illustrator and Photoshop training, surface pattern design, paper design, Silhouette & Cricut file design, and running a design business. She started the Make and Design Podcast so that she could share inspiration, stories, and experiences about design and life with crafters and designers.Find out more at https://www.carinagardner.comWatch this episode as a video at https://www.makeanddesign.com/
In this episode, we delve into the remarkable life of Taniya, a woman living with the challenges of brittle bone disease. With honesty and vulnerability, Taniya opens up about the everyday struggles she faces while living on her own, navigating relationships and contending with additional conditions that have arisen from her disease, such as a brain aneurysm and epilepsy. Despite the adversities she confronts, Taniya's unwavering positivity shines through as she shares her determination to seize every moment and embrace life to the fullest. Join us as we explore Taniya's courageous journey, where daring and adventure become the guiding forces that propel her forward.Taniya's book: Perfectly Broken: My life with Brittle Bone Disease and finding peace in the piecesSupport the showIf you would like to offer any feedback on our show or get in touch with us, you can contact us on the following platforms: Website: www.multispective.org Email: info@multispective.org Instagram: www.instagram.com/multispectiveorg Facebook: www.facebook.com/multispectiveorg Youtube: www.youtube.com/@multispectivepodcast Reddit: www.reddit.com/r/multispective Support the show: https://www.patreon.com/multispectiveProducer & Host: Jennica SadhwaniEditor and Engineer: Chris Trzcinski Marketing and Admin: Stephan Menzel
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Jen interviews her neighbor, Deborah Lapkin, in this week's episode. Deborah gave birth to Haley almost 40 years ago. They did not know at the time of her delivery that Haley has Osteogenesis Imperfecta or Brittle Bone Disease.In this episode, Deborah discusses their journey as a family within a small community and how they both helped to transform much of how our school operates today. She gives us tips on what helped her get out from under the solitude and loneliness of parenting a child with special needs.Jen gets honest about how she doesn't ask for help because sometimes she doesn't even know what she needs. Can you relate? She has some ideas for how those that support us on this journey can offer their own solutions to take help.We celebrate love this week on our Valentine's episode. We hope you enjoy. And, let us know what you think! We love to hear from you. Send emails to ForOurSpecialKids@gmail.com if you have questions, topics, or an amazing person we should highlight. And, please tell a friend or caregiver about us! Follow Us on Instagram & FaceBook, @ForOurSpecialKids or go to https://www.ForOurSpecialKids.comhttps://uppbeat.io/t/lane-king/journeyLicense code: E3DYP1B4L21HSX8E
Writer and disability rights campaigner Samantha Renke is a wheelchair user living with brittle bone disease. Here, she opens up with Dr Sian Williams about the highs and lows of living with a disability, how constantly being subjected to microaggressions can feel like death by a thousand paper cuts, and how she's finally learnt to embrace her uniqueness. Mind Matters with Dr Sian is a podcast from 5 News, hosted by Dr Sian Williams. Producer: Katie Goodman; Executive producer: Silvia Maresca; Guest producer: Jacqui Fuller.
Jimmy talks with Katherine Klimitas, she was born with Osteogenesis Imperfecta, better known as Brittle Bone Disease. By the age of 10, she had broken the bones in her body more than 500 times!! As a result of this disease, Katherine is only 2'7" tall, but don't let her size fool you! She is a powerhouse in the business world as well as the art world! Plus, she's an all around funny, warm, and nice person! You're not going to want to miss this episode! Websites from this episode: Katherine's website is: www.kakartnola.com Living With A Disability Group: www.famousapple.com/group
Katherine Klimitas is an artist, motivational speaker, author, and graphic designer. She is living with Osteogenesis Imperfecta, better known as Brittle Bone Disease. Katherine gets around in an electric wheelchair and she is 2 feet, 7 inches tall. By age 10, my guest had broken over 500 bones because of the disease. However, she and her parents refused to let Osteogenesis Imperfecta disease dictates her happiness and upward mobility. During her senior years at Loyola University, she started KAK Art & Designs. She is now expanding her reach and capabilities as a watercolor artist and motivating others to contribute to their communities. “Some believe in destiny and some believe in fate, but I believe that happiness is something we create.” (Katherine Klimitas quoted this from her favorite hit by Sugarland) Guest's Links: https://www.instagram.com/kakartnola/ https://kakartnola.com/ Now, subscribe to our YouTube channel ( https://youtube.com/channel/UCoc-QGLBLQxIYRa7N-OaRqA). Also, rate, comment, and share this and other episodes with others. #brittlebonedisease #disability #inspiration Please subscribe and share. Also, please donate to this podcast to keep it going. Click the link to donate: https://www.paypal.com/donate?hosted_button_id=KT5DSZEECRSL8 The Canyouth's Exploration social media Links: Facebook page: https://www.facebook.com/CanXplore/ Instagram: https://www.instagram.com/canyouthsexploration/ Twitter: https://twitter.com/CanyouthsN Find and purchase books by Dr. Canute White through this link: https://www.amazon.com/s?k=Canute+white&crid=R4C1V5L88L5O&sprefix=canute+white%2Caps%2C147&ref=nb_sb_noss --- Send in a voice message: https://anchor.fm/radio-white/message
Watch Here: https://youtu.be/wYfZsSB0rZE CAN YOU IMAGINE BREAKING OVER 500 BONES BY THE AGE OF 10? On this episode we are joined by Katherine Klimitas. Katherine has Osteogenesis Imperfecta, better known as Brittle Bone Disease, resulting in her frequently breaking bones (over 500 by the age of ten) and shares her experiences both growing up and being an entrepreneur. On this episode we discuss: Katherine discovering her talent for art at a young age Leveraging your talent to make a living Inclusion in the classroom For places to listen, places to connect on social media, to be a guest, collaborate with or sponsor DTE visit: https://linktr.ee/DisruptTheEveryday Katherine's website: https://kakartnola.com/ About Katherine in her words “Some believe in destiny and some believe in fate, but I believe that happiness is something we create.” If you're a Sugarland fan, too, then you recognize this lyric. It's my favorite from their hit song, Something More. It's completely true. We're presented opportunities for happiness in life and work. But unless we make the effort to pursue those opportunities, we'll never know what it means to be happy. I'm Katherine Klimitas, artist, speaker, author and graphic designer. I have Osteogenesis Imperfecta, better known as Brittle Bone Disease. I get around in an electric wheelchair. I'm 2 feet, 7 inches tall. And by age 10, I had broken 500+ bones. But there was no way my parents and I were going to let my disease dictate my happiness. They made me want to make something of myself, and I was going to be happy doing it—end of story. During my senior year at Loyola University, I started KAK Art & Designs. While my services have changed since 2011, I've stayed focused on 2 key areas: 1) expanding my reach and capabilities as a watercolor artist; and 2) motivating others to contribute to their communities. After owning my business for nearly a decade, what keeps me striving for something more? I want my work to bring people joy. I paint, speak, write, donate my paintings to animal causes and take on music industry creative projects.
Motivation and Inspiration Interviews with Professor of Perseverances
Katherine Klimitas grew up with brittle bone disease, her life was always a little different from those of her able-bodied friends. Her parents always made sure she was enrolled in a mainstream school, and although they made her life as “normal” as possible, there were inevitably activities that her friends took part in that she could not. Katherine's mother gave her first watercolor set to combat some of her boredom, and as they say, the rest is history. Website: https://kakartnola.com/ Facebook: https://www.facebook.com/kakartnola Linkedin: https://www.linkedin.com/in/katherineklimitas/ Instagram: https://www.instagram.com/kakartnola/ To learn more about James, visit Professor of Perseverance. You may also contact him through email, James@professorofperseverance.com or call 615 – 336 – 2181
This first week of May is National Osteogenesis Imperfecta Week and May 6 is Wishbone Day, a day of international awareness for Osteogenesis Imperfecta. And, as it happens, your venerable host ALSO has OI. So guess what we're talking about today!Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, and TwitterSupport the pod ko-fi.com/badattitudespodOI Foundation: oif.orgOut_Cast: linktr.ee/out_castpodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdySupport the show
Establishing a creative outlet can open the door to infinite possibilities. For Katherine Klimitas she says: we're presented opportunities for happiness in life and work. But unless we make the effort to pursue those opportunities, we'll never know what it means to be happy. She's an artist, speaker, author, and graphic designer. She has Osteogenesis Imperfecta, better known as Brittle Bone Disease. She gets around in an electric wheelchair.” I'm 2 feet, 7 inches tall. And by age 10, I had broken 500+ bones. But there was no way my parents and I were going to let my disease dictate my happiness. They made me want to make something of myself, and I was going to be happy doing it—end of story. During my senior year at Loyola University, I started KAK Art & Designs. While my services have changed since 2011, I've stayed focused on 2 key areas: 1) expanding my reach and capabilities as a watercolor artist; and 2) motivating others to contribute to their communities. After owning my business for nearly a decade, what keeps me striving for something more? I want my work to bring people joy. I paint, speak, write, donate my paintings to animal causes and take on music industry creative projects.” She joined me this week to tell me more. For more information: https://kakartnola.com/ LinkedIn: @KatherineKlimitas Follow: @kakartnola
Katherine Klimitas was born and raised in New Orleans, Louisiana, and has been a Numotion customer since she was a child. Katherine's ATP is Butley Mahler out of the Baton Rouge Numotion Branch. Artist, speaker, author, graphic designer, and just a few of Katherine's titles as an adult. Katherine was born with Osteogenesis Imperfecta, better known as Brittle Bone Disease. A power wheelchair is her means of mobility. Don't let her 2 feet, 7 inches tall stature fool you; she is a total powerhouse. By the age of 10 years old, she had already had broken 500+ bones, and she had never let any of her health issues slow her down. Katherine and her parents were not going to let her disease dictate her happiness in life. The Klimitas family is very close, and Katherine's parents would make sure that she found a vocation she enjoyed. Both of Katherine's parents were veterinarians and worked hard but loved their chosen profession and would accept nothing less for their daughter despite the limitations caused by her disability.During Katherine's senior year at Loyola, she started KAK Art & Designs. TheThe services offered at KAK Art & Design have changed since 2011 but still focus on two key areas: 1) expanding her reach and capabilities as a watercolor artist and 2) motivating others to contribute to their communities. Katherine continues to exceed her goal, which is to bring people joy with her work. She was recently featured on Nola.com and Adobe! You can find Katherine's beautiful artwork on her kakartnola.com, and her social media handle is also kakartnola
Osteogenesis Imperfecta is a congenital disorder characterised by brittle bones that are prone to fracture and other features like blue sclera , hearing impairment and discoloured teeth. It is caused by defective collagen synthesis (specifically type 1 collagen). There are many different subtypes of OI and the range of clinical features and severity is vast. There is no cure but treatment may involve medications like bisphosphonates and growth hormone, surgery to fix or prevent fractures or fix deformities, plus lots of physio and OT interventions. Follow us on: - Instagram @yourekiddingrightdoctors - Facebook: https://www.facebook.com/yourekiddingrightpod-107273607638323/ Our email is yourekiddingrightpod@gmail.com Make sure you hit SUBSCRIBE/FOLLOW so you don't miss out on any pearls of wisdom and RATE if you can to help other people find us! (This isn't individual medical advice, please use your own clinical judgement and local guidelines when caring for your patients)
In this episode, we review the high-yield topic of Osteogenesis Imperfecta / Brittle Bone Disease from the MSK section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets --- Send in a voice message: https://anchor.fm/medbulletsstep1/message
When Netflix was looking for a funny nine-year-old wheelchair user - there were those who said that no such thing exists. Sammi Haney, a bright and sassy kid who was born with Osteogenesis Imperfecta Type III (or "Brittle Bone Disease") proved them wrong. Listen now!
When Netflix was looking for a funny nine-year-old wheelchair user - there were those who said that no such thing exists. Sammi Haney, a bright and sassy kid who was born with Osteogenesis Imperfecta Type III (or "Brittle Bone Disease") proved them wrong. Listen now! Episode image photo credit: Frank Ockenfels for Netflix See omnystudio.com/listener for privacy information.
Cammi and AJ welcome Intersectionality Consultant for the Seattle Kraken, Chanel Keenan! Chanel is 22 years old and lives in the Boston area. She has Osteogenesis Imperfecta, also know as Brittle Bone Disease. Chanel fell in love with the game of hockey, but noticed that she did not see many people like her represented. Aware of the need for more inclusion in hockey, she wrote an open letter to the NHL and its organizations. In the letter, she explained that there was room to grow the game and its fan base and that, with her background, she could help spur that growth. Chanel does not allow anything to slow her down and nothing stops this girl from making a difference! Make sure to listen to Chanel Keenan talk about how she came to love hockey, her job with the Kraken, how social media has impacted her, inclusion in hockey and much much more in Episode 14 of on the Bus with Cammi & AJ! Music: Higher Up by Shane Ivers - https://www.silvermansound.comSee omnystudio.com/listener for privacy information.
Jeff Black is a business owner, husband, father, coach and bodybuilder. He runs Iron-House Strength and Conditioning out of Nashville, Tennessee. Being born with brittle bone disease also known as Osteogenesis-Imperfecta or "O-I" as you'll hear him mention throughout the episode. Jeff is relentless is his approach to be the absolute best that he can, he encourages you to do the same!Join us in the conversation as he talks about hardships through his childhood and the journey that eventually led to him falling in love with bodybuilding. -------------------------------------------------------------------------------------------------------------------Helpful Links: Jeff Black - @jeffubreakableblack [https://www.instagram.com/jeffunbreakableblack/]Tim English - @Everycaloriecounts [https://www.instagram.com/everycaloriecounts/]Brandon DaCruz - @brandondacruz_ [https://www.instagram.com/brandondacruz_/]Alex Zaro - @EveryCalorieCounts.Alex [https://www.instagram.com/everycaloriecounts.alex/]Relentlessforever.comIronHouseStrength
Listen to Olivia's story where she shares her experiences with Osteogensis Imperfecta, more commonly recognized as Brittle Bone Disease. To stay updated or to be a guest on Uncovering Disabilities, follow @uncoveringdisabilities on Instagram! Transcript Link: https://tinyurl.com/uncveringosteogensisimperfecta
The Yiadom Boakyes and Osteogenesis Imperfecta Ghana talk about living with Brittle Bone Disease.
This week's episode of SOAR After A Diagnosis is with Prof. Joy Onyesoh, caregiver of her beautiful and sweet daughter Adaeze. Learn more about Prof. Joy and Adaeze as she shares their journey with Brittle Bone Disease.Prof. Joy Ada Onyesoh is the International President of the Women’s International League for Peace and Freedom (WILPF), Country Director of Women’s International League for Peace and Freedom (WILPF) Nigeria and CEO of Joy Onyesoh®️Prof.Joy Onyesoh has been an active member of WILPF since 2007, in 2011, she became the convener of the WILPF Africa working group and in 2014, and she became the International Vice President and the African liaison of WILPF. On the 22nd of August 2018, during the historic 32nd Triennial International Congress of WILPF, Prof. Joy Ada Onyesoh was elected as the International President. This is historic as she is the youngest, first black and African to hold the office of the International President of the 105 years organization and the oldest international women’s peace organization in the world.In April 2018, on the invitation of H.E. Mr. Miroslav Lajack, the President of the General Assembly of the United Nations , Joy participated as a speaker in the opening Session of the High Level Meeting. Prof. Joy Onyesoh is an alumnus of the prestigious Golda Meir MASHAV Carmel International Training Centre Israel and the Women’s Human Rights Institute, University of Toronto Canada. She has also earned several certificates in Transformative leadership, women and peace building and Women Empowerment amongst others. She is a public speaker and International Best Selling Author. Joy is the convener of SHE SPEAKS and CEO of Power Woman Digital magazine . Joy hosts a weekly online inspirational talk show - Friday Night Hangout; She is a Breakthrough and Transformative leadership coach for passion driven women who have a need to discover their purpose and thrive as a result of gaining clarity on ways of creating unlimited abundance.Her mission is to serve passionate women who are willing to unlock their potentials for growth, build confidence in the face of uncertainty and are desirous to experience a life of unlimited abundance . Joy is a passionate, self motivated individual with a drive to succeed, having excellent organizational and interpersonal skills. She is a woman of many parts, highly efficient, methodical and with a proactive approach to performance. Her slogan is “ Too Focused to Give Up”, and this drives her passion in making a difference in the lives of others. Joy’s purpose is to inspire greatness in others and to help people find their life’s purpose and live an impactful life. She creates opportunities for women and girls to find and own their voice. A Rotarian and a Paul Harris Fellow of Rotary International, Joy has a large heart for service towards humanity.Prof. Joy Onyesoh has also received several organizational and International awards for her role in promoting women empowerment and the most recent is the 2019 Female Civility Award for her commitment to women’s empowerment globally.
On today's episode we have our first guest, Priscilla Morelli! Priscilla is a medical school student who has Osteogenesis Imperfecta, also known as Brittle Bone Disease.
God is so faithful! He is the healer, the savior, and deliverer. Today we have a testimony of a lady who had brittle bones her entire life, and then she decided it was time for a healing! cbn.com watch the episode here: https://www.youtube.com/watch?v=MFYL0HtQp6I&t=44s
For people who live with special needs, there are everyday challenges for them and their loved ones that most people never have to consider. Today's episode is an interview with the mother of a child with osteogenesis imperfecta or brittle bone disease.
If you've ever rented an apartment, when you've gone to move out, you've almost certainly told the landlord "I want to get my security deposit back." What happens after that is the great unknown. Most often you've probably just given up arguing with the landlord and let the guy keep your money. Because that's what a huge number of us do, there is about $6 BILLION a year in un-returned security deposits. Marco Nelson is the guy who knows all about that $6B, he's setting about getting it back for all of us, one renter at a time. Marco's startup is called RentCheck and it's already a big deal nationwide. Marco's got a great story about starting out in the military and while his friends are being shipped off to Iraq and Afghanistan, he gets sent to New Orleans! You just know this guy is going to be a billionaire. Katherine Klimitas is a "3." She's also an artist and the author of a new book of portraits of dogs, called Breed All About Us, with co-author Yvonne Krumins. It's a delightful book, especially if you love dogs, and it's equally as delightful as its authors. Katherine's "3" refers to the specific kind of genetic mutation that makes her the shortest person in New Orleans, at 2 feet 7 inches tall - but there's no way you'd guess that from size of her personality - and Yvonne is an author-in-waiting whose time has finally come. Aaron Maras is one of New Orleans most talented singer-songwriters, and that's saying something. Aaron fronts a band called Cactus Thief built largely around his music. On this Happy Hour he plays two songs off the band's latest album, Two Bells. If you don't know Cactus Thief or Aaron you're going to love making this discovery. Happy Hour is recorded live at the iconic Maple Leaf Bar in New Orleans. To see photos from this show by Jill Lafleur, and more check out our website. Check out Katherine Klimitas' last appearance on Happy Hour where she was plotting to sabotage a Rolling Stones gig.
Bones. Far from static objects. In this podcast, Anne discusses aspects of bone physiology that made their way into THE SILVER SKULL.
On April 14th, 2009 Angelo Collazo and his wife welcomed their first daughter Alle Shea Collazo into the world. Alle was born with type II Osteogenesis Imperfecta also known as Brittle Bone Disease. Little Alle died after a five week battle. Angelo joins me to talk about how he has used kindness over the past ten years to help other families dealing with OI. You can learn more about OI and Alle's Snuggle Buddies at http://www.allesheaproject.org.
Join Dan and Big Anthony as they interview Sammi Haney, star of Netflix's show Raising Dion, and her parents Matt and Priscilla Haney. Sammi Haney plays Esperanza (Dion's best friend), a sassy wheelchair user, on Netflix's Raising Dion. She started Disability Shirts (www.disabilityshirts.com), an online t-shirt company that provides themed apparel and products for people with disabilities (and their parents and supporters) in a mission to spread awareness, acceptance, and love for the special needs community. She also sells her own fan merchandise. All of the shirts were created by her father, Matt Haney, who also plays her father in Raising Dion for one very brief scene. Sammi Haney was born with Osteogenesis Imperfecta Type III or "Brittle Bone Disease". --- Send in a voice message: https://anchor.fm/campattitude/message
Part Two Join Dan and Big Anthony as they interview Sammi Haney, star of Netflix's show Raising Dion, and her parents Matt and Priscilla Haney. Sammi Haney plays Esperanza (Dion's best friend), a sassy wheelchair user, on Netflix's Raising Dion. She started Disability Shirts (www.disabilityshirts.com), an online t-shirt company that provides themed apparel and products for people with disabilities (and their parents and supporters) in a mission to spread awareness, acceptance, and love for the special needs community. She also sells her own fan merchandise. All of the shirts were created by her father, Matt Haney, who also plays her father in Raising Dion for one very brief scene. Sammi Haney was born with Osteogenesis Imperfecta Type III or "Brittle Bone Disease". --- Send in a voice message: https://anchor.fm/campattitude/message
This week, Lois Strachan chats to Lauren Jackson who shares insights on travelling to 13 different countries as a wheelchair user. Lauren has a genetic disorder called Osteogenesis Imperfecta, more commonly known as Brittle Bone Disease. Our service provider spotlight features Cape Nature's Vrolijkheid Nature Reserve which has a wheelchair accessible bird hide as well as a braille hiking trail. Today's travel quote is from Neale Donald Walsch: "Life begins at the end of your comfort zone." This episode was edited by Craig Strachan using the Hindenburg software. Credits read by Musa E Zulu.
Accessible South Africa — This week, Lois Strachan chats to Lauren Jackson who shares insights on travelling to 13 different countries as a wheelchair user. Lauren has a genetic disorder called Osteogenesis Imperfecta, more commonly known as Brittle Bone Disease. Our service provider spotlight features Cape Nature's Vrolijkheid Nature Reserve which has a wheelchair accessible bird hide as well as a braille hiking trail. Today's travel quote is from Neale Donald Walsch: "Life begins at the end of your comfort zone." This episode was edited by Craig Strachan using the Hindenburg software. Credits read by Musa E Zulu.
Pathologystudent.com - Brittle bone disease
In this episode, Lance and Winston Clements talk about breaking through limiting barriers. Winston dives into how he became empowered to inspire 1 billion people and his journey to create a world without limitations.Winston was born with a condition known as Brittle Bone Disease, which stunted his growth and caused his bones to be extremely fragile. Due to his condition, he broke bones 150 times all by the age of 12. This condition limited him especially during childhood because he had to undergo numerous surgeries and missed out at having a normal childhood.The turning point for Winston came many years later, after he had successfully graduated from University with a degree in Computer Science. He then struggled with finding employment due to his condition. After years of struggle, he decided to stop comparing his life to other people and stop letting his disability define him as a person. Breaking through his self-imposed barriers empowered him to build a successful tech career with some of the largest corporations in the world.Winston is now an award winning international business speaker, TEDx speaker, and trainer of organizations on the topics of Resilience, Change Management, Diversity & Inclusion.Winston tells listeners: “When you have the urge to do something different, then give it a try.”IN THIS EPISODE, YOU WILL LEARN:How to start breaking your own limiting barriers to achieve your goalsYour untapped limitless potentialBenefits of having a power hour to empower yourself in the morning. Connect with Winston Clements:Follow Winston on Facebook, LinkedIn, and Instagram.Follow Winston on his website.Connect with Lance:Subscribe on Messenger to get the latest episodes and tips straight to your inbox! Connect with Lance on Facebook, Instagram, or LinkedIn. About University of Adversity PodcastLearn how to overcome failure and tragedy, while becoming your best self with the University of Adversity podcast. Join your host Lance Essihos as he interviews successful individuals that have fought the hard battles to overcome life’s obstacles. Lance started the University of Adversity podcast after overcoming his own adversities shared in episode 01. Join him and thousands of other entrepreneurs in learning how to use Adversity as a fuel to ignite your inner flame and live the life you have always desired. Tune in weekly for a dose of positivity, strength, and real-life practical advice to achieve your life goals.Support the show (https://www.lanceessihos.com/)
Tony Jacobsen was diagnosed with Osteogenesis Imperfecta or Brittle Bones at an early age. Going through his early years Tony broke many bones and his life was severely impacted to the point he was wheelchair bound. Fast forward to age twenty four and Tony was able to walk for the first time and totally transform his body to a fully functioning, stronger version of itself. In this episode Tony recounts his journey to overcome and deal with brittle bones and how he wants to positively impact other people dealing with severe health challenges in life. Check out Tony on the following platforms: Instagram: @iamtonyjacobsen YouTube: DisableMyDisability Tonys website: tonyjacobsen.com --- Send in a voice message: https://anchor.fm/pillarsofhealth/message Support this podcast: https://anchor.fm/pillarsofhealth/support
I've been so eager to bring Sparsh Shah onto the Live Inspired Podcast since I was first introduced to him in March 2017. Fifteen-year-old Sparsh shares about being born with Osteogenesis Imperfecta, or "Brittle Bone Disease", and how he hasn't let it define his life. Sparsh, also known by his rapper name Purythem, went viral with his rendition of Eminem's Not Afraid and since sang the National Anthem at Madison Square Garden. He radiates positivity while owning his disability with awe-inspiring grace. Today's conversation is beaming with contagious optimism + resilience that will leave you inspired. SHOW NOTES Sparsh was born with Osteogenesis Imperfecta, also known as Brittle Bone Disease. Sparsh has suffered almost 130 fractures, including his skull. "I've dissed my disability." There is always a valley before the hill. Sometimes the deeper the valley, the higher the hill. Ragarap: Sparsh began studying classical Indian + Western vocal music, blending aspects of each into his performances and creating his own sound he calls "ragarap". Rapper Eminem became an inspiration to Sparsh because of his dedication to improving his skills + overcoming a troubled background. Sparsh chose to sing Eminem's Not Afraid because of the uplighting lyrics that made him feel unstoppable; it ultimately became a viral hit viewed over 75 million times. Watch Sparsh Shah's TEDx Talk, where he speaks of turning the impossible to "I am possible", here. "When one door closes, another opens. We often look so long, hard and regretfully at the closed door, we forget that there was a door open for us." Why waste our life in the past when we can think about what to do now. "The past is history, the future is a mystery. The present is the greatest gift we can receive." - Bil Keane "Sometimes the storms interrupt our daily lives." Follow Sparsh on Facebook, Instagram and Twitter. If you enjoyed Sparsh's optimistic outlook of his disability, listen to Live Inspired Podcast ep. 7 with hearing-impaired comedian Kathy Buckley and Live Inspired Podcast ep. 63 with paralyzed barrel racer Amberly Snyder. SPARSH SHAH'S LIVE INSPIRED 7 1. What is the best book you’ve ever read? How to Win Friends & Influence People by Dale Carnegie. The Seven Habits of Highly Effective People by Stephen R. Covey. The Seven Habits of Highly Effective Teens by Sean Covey. 2. What is a characteristic or trait that you possessed as a child that you wish you still exhibited today? Resilience and optimism. My dad said I had a smile that would light up anyone's face. 3. Your house is on fire, all living things and people are out. You have the opportunity to run in and grab one item. What would it be? My MacBook. 4. You are sitting on a bench overlooking a gorgeous beach. You have the opportunity to have a long conversation with anyone living or dead. Who would it be? Jesus and I would ask him, "how and why is it that the life that is so imperfect, you made it perfect the way it is?" I've realized in life things are perfectly imperfect. 5. What is the best advice you’ve ever received? No matter what happens in your life, don't give up on your passion. No matter how many bones you break, your voice will never break. You can do anything in life, you've come here for a reason. 6. What advice would you give your 20-year-old self? (Sparsh it not 20-years-old yet!) 7. It’s been said that all great people can have their lives summed up in one sentence. How do you want yours to read? Though I struggled, I refused to suffer. And because I refused to suffer, I conquered. *** Did you enjoy today's episode? Subscribe, rate + review on Apple Podcasts or wherever you get your podcasts! Live Inspired with John daily on Facebook, Twitter, YouTube, LinkedIn, Pinterest, Instagram + get his Monday Motivation email.
No Limits!!!!! Brittle Bone Disease in TaeKwonDo Podcast Mick Tully interviews Robbie Hirst one of the youngest and most determined martial artists you could ever meet who deals with broken bones on a daily basis and doesn't let his condition stop him training Tae Kwon Do. Listen to his inspirational story on Mick's Martial Arts. Mick Tully talks with Robbie who has overcome more than his fair share of obstacles on his way to his black belt in Tae Kown Do. A genetic condition means that Robbie Hirst has had more broken bones than every other guest we've had on the show COMBINED! Join him as he tells us how everyday tasks can lead to another break, yet that never gets in the way of his training. A truly inspirational interview, that also features possibly Mick's worst joke EVER. Stay tuned right to the end for that. If you enjoyed the show please spread the word and share among your friends. Mick's Martial Arts is produced by Ant McGinley and features music from Katalina Kicks which appears with their kind permission. Find out more at www.katalinakicks.com Recorded earlier this year at the Warriors Assemble awards. Thanks for reading & watching, we hope you enjoyed it, please LIKE, SHARE and don't forget to SUBSCRIBE to World of Martial Arts Television for more great content!!
“I’m in a unique position because I’m going to be more memorable and I use this to reach as many people as possible” In this episode, Jay interviews Winston Clements who shares his story of being memorable and his perspectives on how resilience and positivity should be a part of everyone’s lives. Listen in now to find out why. KEY TAKEAWAYS I started in corporate financial services within technology roles and then moved to consultancy work in software engineering. I initially began public speaking as a hobby but demand for my speaking work has increased and the majority of my time is now focused on sharing my story. I have a condition known as Brittle Bone. This means my bones break very easily, during my childhood I experienced more than 100 breaks in my bones, this is the nature of the condition but as I have grown older it has stabilized. I’ve always been open with people about my story and it inspired me to want to be a public speaker. You have a very strong mindset, where does that come from? I had physical challenges, but my parents brought me up to believe I was the same as anyone else. My sister and I have always been treated equally. So, at school, I expected to be the same as everyone else. Overprotecting me would have hindered my progression, I was able to get out there fall over a few times and learn to pick myself up which is the reality for everyone. I had my down days like everyone else, but I learnt to focus on my strengths. I’ve always found it easy to make connections, be present in the situation and so I concentrated on developing those and being happy. What challenges did you have gaining employment? In my mind, I thought getting a job would be very straightforward, but it took me 6 months to find my first graduate job. During this time, I looked at my mindset and I realised I needed more resilience as it's not just about having the talent but about keeping going even though I didn’t see results straight away. Where did you find resilience? Lots of my close friends got jobs within 1 or 2 months and I started to question how it was possible for them not me. I then realised I needed to look closely at myself and stop playing the victim, blaming it on being different. So, I decided to take ownership of it and instead of applying for 6 or 7 jobs a week I doubled my efforts over everything. Have you had any mentors? I’ve had several mentorship experiences and some that have been life changing. One of my mentors helped me to understand my mission and purpose – that my disability, is my gift, it is about a bigger picture and supporting others. Mentors – it’s all about finding the right fit someone who has experience of where you want to be and someone who you have a rapport with. How do you deal with the down days? I’m a human being and being resilient is a spectrum. Like everybody else, there are days where I feel more or less resilient than on other days. I surround myself with people who are honest with me, pull me up and aren’t afraid to tell me how it is and expect accountability from me. What are you doing at the moment? I still do some consultancy work but am hoping to move across to speaking full time and sharing my message as much as possible through courses and workshops. The thing that has enabled me is that it is my passion, I just want to give value and help people. When you put value first and concentrate being the best at what you do everything else just falls into place. BEST MOMENTS ‘They just wanted me to have as normal an experience as possible’ ‘The easy route is usually not the best route’ ‘The comfort zone is to stay in the victim mentality, at that moment you don’t have to try’ ‘If you take action you can change things for yourself’ ‘Failure happens the day you stop trying and anything in between is feedback’ ‘Whatever you have you need to turn it into a positive’ ‘When an individual messages me to let me know I’ve made an impact on them’ VALUABLE RESOURCES https://itunes.apple.com/gb/podcast/business-mentor-podcast/id1370793386?mt=2 ABOUT THE HOST Jay Dhillon is a serial entrepreneur, investor and philanthropist based in the UK with a proven track record of growing businesses from start-up to success- and helping others do the same. From humble beginnings, Jay grew his first business from 0-500 employees and three locations, racking up sales of over £30 million – all without any investment other than a small amount of savings. The business went on to acquire major clients such as Landrover, Jaguar, Toyota and New Look, to name a few. Its huge success inevitably brought about outside interest and at the age of 33, Jay eventually sold the company to a London investment firm in Doyen Resources. Today, Jay owns several businesses in different sectors and helps entrepreneurs achieve success. A calling to give back and help others led to Jay being chosen for the highly-coveted role as a Prince’s Trust mentor, where his achievements were marked by a personal invitation to Buckingham Palace to meet Prince Charles. After helping several young entrepreneurs to success as a mentor for the Trust, Jay’s burning desire to bring his wisdom and knowledge to a wider audience ultimately triggered the concept of The Business Mentor Podcast. Jay feels that anyone can achieve success in business with the right advice and mentoring and is now sharing his knowledge with his growing audience via his podcast. In the UK alone 95% of business fail within the first five years and Jay’s aim is to reduce that number. Backed with the hard-earned knowledge and experience from his time in business, The Business Mentor Podcast will share Jay’s personal business lessons as well those of other successful entrepreneur guests who share their wisdom and secrets on the show. CONTACT METHOD https://www.jay-dhillon.com/ https://uk.linkedin.com/in/jaydhillon https://www.instagram.com/jaydhillonuk/ GUEST BIO Winstons Website for more details: https://winstonclements.com Winston shares personal stories from his life and explains the role of resilience in overcoming challenging situations. He shares his top tips on how you can build up resilience, as well as the importance of living in the moment and having fun. Winston Ben Clements was born with a condition known as Brittle Bones disease, medical term Osteogenesis Imperfecta. An obvious characteristic is his small stature and his use of a wheelchair, which does not tell the story of the frequent and painful bone fractures that disrupted much of his childhood. Nonetheless, Winston successfully graduated with a degree in Computer Science and built up a successful corporate career in the Technology sector. He is passionate about Speaking and his mission is to create a world where nobody feels limited in what they can achieve. CONTACT METHOD GUEST http://winstonclements.com/ https://www.facebook.com/WinstonSpeaker/ https://www.instagram.com/winstonspeaker/ https://twitter.com/WinstonSpeaker
In this episode, Josh sits down with our featured family for August 2018. Jeff and Alison Silver share the story of the surprise diagnosis of osteogenesis imperfecta shortly after their son Samuel's birth, the misconceptions of “Brittle Bone Disease,” what they’ve learned from Samuel, and more.
Simon Illa is an American music writer/producer/vocal arranger from Paris, Illinois. He was voted by Blender Magazine as Philadelphia’s Hottest producer in 2008. As a child, Simon was diagnosed with Osteogenesis Imperfecta otherwise known as “Brittle Bone Disease.” He stopped by Jesse Itzler’s house to catch up with Lance on O.I., breaking into the music industry, inspiring people and more.
Samuel was born with a severe genetic bone disorder - has had countless broken bones, cannot walk, is 3 feet tall ........ and his story will change your life ! ‘There is always a way’ to get things done. It may not be conventional but, ‘there is always a way’.. This is the creed of Samuel Gibson. Samuel is a speaker, business entrepreneur and adventurer. His quest for testing his boundaries has taken him to many parts of the word and enabled him to change his and other people's lives in the process. His amazing story has been documented on New Zealand television, design magazines and even in a children’s book, winning him the coveted "Attitude Enterprise Award" along the way. Samuel was less than five minutes old when both his legs were broken by a well-meaning midwife. Sam was born with a genetic bone condition called Osteogenesis Imperfecta, or Brittle Bones. He cannot walk, is 3 feet tall, yet considers himself lucky! His story is one you will never forget. Growing up in a loving family environment, Samuel just wanted to be like all the other kids. He did what the other kids did even if it meant breaking a bone or two along the way. One thing for sure Samuel was not going to become a statistic. Not going to put his life on hold. The attitude he developed, the lessons he learnt and the obstacles he had to overcome along the way makes for a story that will make you laugh, make you cry and inspire you. After a short time on the speaking circuit Samuel is making a huge impact. His story appeals to all audiences, he has addressed project managers, scientists, medical practitioners, corporate leaders, young leaders, service organisations and CEO's. His life is testimony to his attitude. He is a Husband, Father, successful business entrepreneur and adventurer, but more importantly an example of how to overcome obstacles no matter how great. Up next is a 300km running/wheeling mission with Lisa Tamati to raise money for another little boy with the same disease. www.runninghotcoaching.com www.lisatamati.co.nz
The Year is 2020..NO HORSES ALLOWED! Tuesday June 2nd Noon CST on Equestrian Legacy Radios SADDLE UP AMERICA! We talk with RANDY RASSMUSEN of BACK COUNTRY HORSEMEN OF AMERICA...we are loosing land and trails as we speak. Is there time to make a difference? CHRISTINE PEARL of CIRLCE E GUEST RANCH takes us on a tour of this gem of a guest ranch in the Cumberland Mountains of Tennessee. Equestrian Legacy Radio will be there this week with all our not so "Rowdy" friends to raise money to help children with Brittle Bone Disease. Join GARY HOLT and co-host TINA MAE WEBER every Tuesday at Noon CST with entertaining guest and valuable information for the Trail Rider. We take you across the country to visit great riding destinations at Horse Campgrounds and Guest Ranches that you'll want to add to your "Bucket List" SADDLE UP AMERICA! is brought to you by Trailguard 24 hour Roadside Assistance Learn more about Trailguard at www.trailguard.org And by Trailhead Supply your Source for the Best Camping Gear, Horse Packing Equipment & Horse Riding Gear. Learn more about Trailhead Supply at www.trailheadsupply.com EQUESTRIAN LEGACY RADIO is Heard Around the World on our FREE Mobile App and Online at www.equestrianlegacy.net
Thurs. May 14th Noon CST on EQUESTRIAN LEGACY RADIO'S Campfire Cafe' We welcome legendary singer/songwriter MICHAEL MARTIN MURPHEY to talk with us about "Brittle Bone Disease", his granddaughter Fiona and the Fiona Rose Murphey Foundation. We'll also share information about the upcoming 4 day event in TN to Benefit the Foundation. In the 2nd segment we'll discuss Horses and the Law 101 with Maryland Equine Attorney KATHLEEN TABOR, Esquire. Kathleen will talk about you're right's and responsiblities as a horse owner and as an equine business owner. You don't want to miss this show! Join GARY HOLT and co-host BOBBI JEAN BELL every Thursday at Noon CST with lively conversation and music from your favorite entertainers as well as interesting stories and information from guest in the wonderful World of Horses! EQUESTRIAN LEGACY RADIO is made possible by the support of our fine sponsors of the LEGACY CLUB and The GENERAL STORE. Visit and shop with them Online at our Website. EQUESTRIAN LEGACY RADIO is Heard Around the World on our FREE Mobile App and Online at www.equestrianlegacy.net
EQUESTRIAN LEGACY RADIO host GARY HOLT visits with FIONA and AND RYAN MURPHEY to talk about life with Osteogenesis Imperfecta (Brittle Bone disease) and the upcoming Fiona Rose Murphey Foundation National Trail Ride June 5th-7th. To learn more visit : http://www.equestrianlegacy.net/frmf-trail-ride-locations--artist.html www.fionarosemurpheytrust.org/
EQUESTRIAN LEGACY RADIO host GARY HOLT visits with FIONA and her parents FRANCIE AND RYAN MURPHEY to talk about life with Osteogenesis Imperfecta (Brittle Bone disease) and the upcoming Fiona Rose Murphey Foundation National Trail Ride June 5th-7th.
SimplyHormones presents: An Interview with Prof John Studd, Vice President National Osteoporosis Society and Chairman of the British Menopause Society. Osteoporosis is a natural disease of aging but one we can ALL do something about – this brittle bone disease most often eats away at bones after degeneration of […]
Optimum Human Performance: Osteoporosis, the brittle bone disease...
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