DiepCJourney Podcast

There are many acronyms, terms, and procedures patients hear either in consultation with their plastic surgeon or online through various social media groups and platforms. Our guest on this edition of the DiepCJourney podcast is a board-certified microsurgeon who will help us sort out three of those terms today. The delay procedure, SIEA, and TDAP in breast reconstruction surgery. We appreciate everyone who is utilizing the DiepCFoundation resources. Be sure to click here for the video interview with my guest at the DiepCFoundation YouTube channel. I am joined by Dr. James Craigie, who specializes and is trained in microsurgery. The primary focus at his practice at The Center for Natural Breast Reconstruction in Mt. Pleasant, SC, is performing complex breast reconstruction procedures which we will discuss in this interview. I want to highlight that Dr. Craigie works with a team of microsurgeons practicing the co-surgeon model in breast reconstruction surgery. To learn more about the benefits of the co-surgeon model check out a previous episode of the DiepCJourney podcast by clicking here. At the Foundation, our focus is to provide accurate information to our listeners and why I ask Dr. Craigie to join us to discuss specific procedures in this interview. The paper I reference in the interview on the value of the co-surgeon model in breast reconstruction can be found and read by clicking here. Connect with Dr. Craigie and his practice on the following platforms. Instagram: https://www.instagram.com/natural.breast.reconstruction/ Facebook: https://www.facebook.com/naturalbreastreconstruction LinkedIn: The Center for Natural Breast Reconstruction

This is a follow up of my interview with Margaret Tueller Proffitt who I spoke to after her phase one DIEP flap surgery at PRMA in San Antonio in January of 2024. I invited her back to the DiepCJourney podcast to share  details of the completion of her breast reconstruction after phase two. She traveled back to San Antonio seven months after phase one for her phase two surgery. We talk about the following: ·       Communication and discussion with Dr. Whipple about your phase via a ZOOM call. ·       What did she pack for phase 2. ·       Who she traveled with for this phase of her surgery. ·       The details of what Dr. Whipple did for phase 2. ·       Compression garments, medical dressings, and showering. ·       Pain medication, bruising, and change in clothing size after fat grafting. ·       Flying home after surgery. Margaret is a strong advocate and voice for the BRCA and breast reconstruction community. She is a mother, wife, loves to read, travel, has pets and she is a rock star on our Foundation YouTube channel with over a thousand views of video interview of phase one surgery. She is living life, enjoying activities, travel, and family celebrations. I love success stories so I asked Margaret what she wanted to share with those listening to the interview who might be considering DIEP flap surgery. “This was a short period of hard. Go forth with confidence. I love the body I have now.” Connect with Margaret on the following platforms: Instagram: https://www.instagram.com/cmproffitt/ LinkedIn: https://www.linkedin.com/in/margaret-proffitt/ Facebook: https://www.facebook.com/margaret.t.proffitt

This interview on the DiepCJourney podcast is with three nationally known medical tattoo artist. It will also be available on the DiepCFoundation educational YouTube channel for viewing. Our conversation today is on medical tattooing with three of the leading medical tattoo artists in the United States. I begin with the President and founder of AMT, The Alliance of Medical Tattooing, Ms. Nicole Rizzuto, a licensed tattoo artist and I speak to her about her vision and why she created AMT. Next is Christina Siegel who is a registered nurse and licensed tattoo artist and is the vice-president of AMT. Last and certainly not least, is the medical tattoo artist in our beautiful city of Seattle, WA., Mr. Eric Eye. Eric and I are both advisory board members of AMT. As a two-time cancer survivor who had successful DIEP flap breast reconstruction after a double mastectomy, I wanted “body art,” a story, a strong reminder of who I am, what I do, and a symbolic message to celebrate my own personal Journey through breast cancer. When I describe this as body art, it is much more that that because I went to a medical tattoo artist. I chose Eric Eye because of his artistic background, credentials and someone who works with breast cancer patients. Going to a tattoo artist is an emotional process that is transformative, having a profound impact on breast cancer survivors. In a recent cross-sectional study, the researchers examined the relationship between medical tattooing as a complementary cosmetic intervention and body-image distress and mental health outcomes among breast cancer survivors following surgery. The findings show medical tattooing may be a valuable tool in improving body-image distress and mental health for those who wish to pursue it. The study also states more research is needed. We discuss the services medical tattoo artists provide, safe practices and what patients should be asking for, the planning and shared decision-making conversations with your medical tattoo artist, and how each of them finds balance in this work of passionate care for breast cancer patients. Please view their work on their websites and social media channels, especially Instagram. Connect with these medical tattoo artists on the following platforms: Nicole Rizzuto: Facebook: https://www.facebook.com/nmrtattoo Instagram: https://www.instagram.com/nmr_medical_tattoo/ Christina Siegel Facebook: https://www.facebook.com/livingstorytattoo Instagram: https://www.instagram.com/livingstorytattoo/ Eric Eye: Facebook: https://www.facebook.com/profile.php?id=100064024771215 Instagram: https://www.instagram.com/eric_eye_restorative/ Alliance of Medical Tattooing: https://www.instagram.com/alliance_medical_tattooing/  

We are going to discuss the topic of scars and cover several topics related to scars on this edition of the DiepCJourney podcast. It is understood, anyone who has surgery will have scars of some kind. There is a mechanism to how scars heal. In plastic surgery, if you think of the Greek word, plastikós (πλᾰστῐκός it means to shape or mold. Scars are a significant consideration in plastic surgery then. I invited an expert in the field to share his expertise on the topic. My guest is Dr. Andrew Gassman joined PRMA in San Antonio, Texas in 2021. Dr. Gassman completed his plastic and reconstructive surgery residency at UCLA David Geffen School of Medicine in Los Angeles, California, and a general surgery residency, as Chief of Surgical Resident Education, at Loyola University Medical Center in Maywood Illinois. Following his residency, Dr. Gassman completed his fellowship in breast and reconstructive microsurgery, with a specialty in facial reanimation at UTSW Department of Plastic and Reconstructive Surgery in Dallas, Texas. Dr. Gassman and his team practice the co-surgeon model in breast reconstruction, meaning each patient undergoing autologous breast reconstruction will have two board-certified microsurgeons in the OR at the time of their reconstruction. They are part of the IFAR (Institute for Advanced Reconstruction) network collaborating with other microsurgeons in the IFAR network to improve patient safety, care, and outcomes. Dr. Gassman discusses the importance of scars and the considerations for plastic surgeons regarding scars for their patients. He tells us, “These are marks that a patient is going to carry with them for their lives.” He tells us about techniques used at his practice and considerations like: ·       Scar placement ·       Scar healing ·       Different types of scars and skin types ·       Scar management after surgery ·       Scar revisions at phase 2 ·       Emotional impact of scars We reference a DiepCJourney podcast in our discussion you can listen to here: Ep. 60: Credibility in the Noise _ Social Media, Breast Reconstruction, and Your Experience. Connect with Dr. Gassman on the following platforms: Instagram: https://www.instagram.com/gassman_ps/ Instagram: PRMA https://www.instagram.com/prmaplasticsurgery/ Facebook: https://www.facebook.com/dr.andrewgassman YouTube: https://www.youtube.com/@PRMAPlasticSurgery

Do most people who have nipple reconstruction have breast reconstruction? Not necessarily. Do you think about nipple reconstruction if you've had breast cancer and are in a consultation for breast reconstruction? We are going to answer these questions and others on this episode of the DiepCJourney Podcast. My guest is Dr. Courtney Carpenter of PRMA in San Antonio, Texas. Dr. Carpenter is passionate about utilizing her extensive expertise and experience to help transform lives through reconstructive plastic surgery. I want to point out that PRMA uses the co-surgeon model in breast reconstruction, meaning there are two board-certified microsurgeons with the patient in the OR at the time of autologous breast reconstruction surgery. PRMA is part of the IFAR (Institute for Advanced Reconstruction) network of surgeons. We discuss these topics: ·       At what phase of the reconstructive process does nipple reconstruction happen? ·       Methods of nipple reconstruction. ·       Recovery and dressings used after surgery. ·       3-D Medical tattooing of the NAC (nipple areola complex) for those who do not have nipple reconstruction. This is what Dr. Carpenter tells us as she summarizes her thoughts at the end of the podcast. “Nipple recon is something people don't think about. They hear their diagnosis. They are thinking about breasts. They are not necessarily thinking about the nipples or the thought that their nipples might be removed isn't something that even crosses their mind, even though it might be on my mind or their breast surgeon's mind. I think that people should be encouraged to ask more questions. Especially if they are a candidate for preserving their nipples or not preserving their nipples. Questions are always great! I love questions, it means you're thinking about it! You're trying to get as much data as you want or as you need in order to make your decision.” I am grateful for her time and expertise to help prepare our listeners for their consulation for breast reconstruction surgery and to know what questions to ask about nipple reconstruction.  Connect with Dr. Carpenter on the following platforms: Instagram: https://www.instagram.com/prmaplasticsurgery/ Facebook: https://www.facebook.com/PRMAplasticsurgery YouTube: https://www.youtube.com/@PRMAPlasticSurgery

How much do you know about robotic surgery for DIEP flap breast reconstruction? What areas in the U.S. are performing these types of robotic surgery for those affected by breast cancer? What if I told you robotic DIEP flaps are being performed in Hawaii? It is important to share with you surgeons I meet to provide access to care for those affected by breast cancer. Thank you for listening to the podcast to find out who these surgeons are. We are going to discuss robotic surgery and DIEP flap being performed in Hawaii with my guests on this edition of the DiepCJourney podcast. Be sure to watch our conversation on the DiepCFoundation YouTube channel when it is published, and you can sit with us and watch our conversation. I first met Dr. Daniel Murariu at the American Society of Plastic Surgeons in San Diego in September of 2024. What impressed me at our first meeting was his interest in the resources breast cancer patients provide. We talked about the resources provided by DiepCJourney Foundation, but we also discussed the many other breast cancer support groups helping patients navigate their decision through treatment, surgery, and recovery. I was also impressed with the time he spent listening and I thought to myself, if I were a patient of Dr. Murariu, I think I would feel very much a part of my decision process with his thoughtful demeanor. He is a TEDx UC Davis speaker, Rotarian, speaks three languages, has published multiple papers, an impressive resume to be sure!! Further, Dr. Murariu practices the co-surgeon model at his private practice office in Honolulu, Hawaii at Athena Clinic Plastic Surgery. He collaborates with his team member, Dr. Peter Deptula. We are going to learn more about the work of Dr. Deptula and his training in the interview. They are both board-certified reconstructive surgeons who perform autologous breast reconstruction, lymphedema surgery, complex abdominal wall reconstruction, and complex microsurgery focusing on head and neck and breast reconstruction. We wrap up our conversations with an announcement by Dr. Murariu. It is exciting to know that he and Dr. Deptula are organizing the RAMSES 2027 meeting in Honolulu, Hawaii. RAMSES stands for The Robotic Assisted & Microsurgical Endoscopic Society, “The group represents the ‘early adaptors' of robotic technology in the field of microsurgery.” He graciously invites surgeons to visit them to observe their work and learn more about robotics in plastic surgery. Connect with Dr. Murariu and Dr. Deptula across these platforms: Instagram: Dr. Murariu: https://www.instagram.com/p/DE9H3QrRhNI/ Dr. Deptula: https://www.instagram.com/doctor.petey/ LinkedIn: Dr. Murariu: https://www.linkedin.com/in/daniel-murariu-0ba2b7195/ Facebook: https://www.facebook.com/people/Athena-Clinic-Plastic-Surgery/100087242137827/  

This interview is another resource provided by DiepCFoundation.org specifically providing access to care for those affected by breast cancer. The slide presentation and interview are available on the Foundation educational channel for our listeners and followers who would like to access it at DiepCFoundation YouTube channel. We are discussing a topic that is often discussed in my community so I reached out to my guest to share her expertise on the repair of diastasis and recognizing what a hernia or bulge might look like after autologous breast reconstruction, specifically DIEP flaps. My guest is Dr. Kelsey McClure who practices with a team of other microsurgeons at Southwest Breast and Aesthetics in Phoenix, AZ. She is a board-certified plastic surgeon and holds certification with The American Board of Plastic Surgery. She is an active member of: The American Society for Reconstructive Microsurgery (ASRM) The American Society of Plastic Surgery (ASPS) Mountain West Society of Plastic Surgeons (MWSPS) AND the Arizona Society of Plastic Surgeons She has authored several research publications. Dr. McClure believes that shared decision- making is necessary to tailor a comprehensive aesthetic and reconstructive plan. We reference a PRS Global Open paper published by Dr. Arvind Gowda who has been a guest on a previous episode of the DiepCJourney podcast. The paper can be accessed through this open-source Journal here: Approach to DIEP Flap Pedicle Dissection via a Midline Fascial Incision Connect with Dr. Kelsey and her team across these platforms: Instagram: https://www.instagram.com/southwestbreast/ Facebook: https://www.facebook.com/SWBreast          

When you have cancer you become a patient, and advocate, a student, and yes, I said student. It's like taking one of those classes at university that you must take to learn the topic, but you don't really want to take it. Have you ever met someone in the breast cancer community, and you think to yourself, “Damn! They really did a good job of navigating this whole process.” They view their life before cancer. They view their life during diagnosis, after treatment, after surgery, and what that should look like to them. Then they got on with it. I met one of those people and we chat on this episode of the DiepCJourney podcast. We met through a mutual friend who is a trained microsurgeon. Dr. Anita Mohan introduced me to the inspirational Samantha Vale. They have known each other for quite some time; before Anita was a microsurgeon and before Sam had breast cancer. They danced, celebrated, and traveled together. Their friendship continues today and I'm lucky to know them both. The story of her multiple occurrences, surgeries, and the lessons she learned along the way will inspire the listener to put your own story into a new light and perspective. Sam is a single mom with two young children who continues to navigate her personal Journey and choice not to reconstruct after a double mastectomy. Listen to Sam's story and how dance and music continue to nourish her creative strengths. She is a published author, and her book link can be found at the bottom of these notes.   Connect with Samantha across these platforms: Instagram: https://www.instagram.com/samanthavaleuk/                      https://www.instagram.com/samanthavaledance/ Samantha's book on Amazon: The Lady with no Hair    

As promised, season five presents our listeners with interviews from experts and shares with you all your options for breast reconstruction surgery after mastectomy. In this episode of the DiepCJourney podcast the expert we interview is Dr. Arvind Gowda who collaborates with a team of surgeons at Southwest Breast and Aesthetics in Phoenix, Arizona. One of our goals on the podcast is to provide access to care, no matter who you choose for your breast surgery. When you dial down to autologous reconstruction, using the patients own tissue, it becomes important to research the background, skill, and collaborative team effort of the microsurgeon you choose. Patients frequently must travel to find a microsurgeon, so it is our honor to provide this interview with Dr. Gowda for your consideration. Dr. Arvind Gowda tells us about his interest, training, and fellowship in microsurgery for the listeners. He shares with us the names of his colleagues at Southwest Breast and Aesthetics. Dr. Gowda describes the importance of the co-surgeon model and how he and his team work together to optimize patient outcomes and improve the experience for the patient and the surgeon. Dr. Gowda talks about the role of PAs (Physician Assistants) both in and out of the operating room at his practice. PAs play an integral role in the OR but also in clinic and for patient follow up. The ability to reach out to the PA when the surgeon is with a patient in the OR helps facilitate communication for patients. Dr. speaks of the importance of patients assessing their goals to have a truly shared decision-making conversation with them regarding their choice in breast reconstruction and breast surgery. Dr. Gowda shares his morning routine as well as one of his favorite workouts plans to maintain his health and stay strong for his patients. Connect with Dr. Gowda through his practice on these platforms: Instagram: https://www.instagram.com/southwestbreast/ Facebook: https://www.facebook.com/SWBreast

Listeners of the DiepCJourney podcast are familiar with the DIEP flap breast reconstruction procedure where the abdominal skin, tissue, and underlying blood vessels are used to replace the breast tissue lost due to mastectomy after being affected by breast cancer. On this episode we are going to discuss the “stacked flap” in breast reconstruction. I'm speaking with Dr. Tim Matatov of Southwest Breast and Aesthetics in Phoenix, AZ. He is a board-certified plastic surgeon who is specifically trained in microsurgery. It is the specialty of microsurgery that is required to perform a stacked flap procedure. Dr. Matatov and his team perform these and why I reached out to him for this interview. Dr. Matatov tells us the original definition of a stacked flap is that you put one flap on top of the other and place those two flaps into a surgical site, in this instance, the breast area to recreate a breast after mastectomy. It has evolved to a flap from the abdomen, a bipedicle flap with two blood vessels that are connected to the entire abdomen and taken as one piece. He points out that at his practice it is used for skin resurfacing in the radiated patient where a lot of the damaged tissue would have to be removed. This type of flap provides enough skin to repair the area damaged and needing repair from radiation. Another purpose for a stacked flap is in the setting of a single mastectomy; when a patient chooses to remove only one breast and keep the other and there is not enough tissue from a single flap from the back, thigh, or abdomen. In this instance, the stacked flap provides the volume needed to achieve symmetry with the existing breast.  Dr. Matatov goes on to tell us where on the body theses blood and tissue sources are from as well as what the recovery looks like for patients. Connect with Dr. Matatov and his practice on these platforms: Instagram: https://www.instagram.com/southwestbreast/ Facebook: https://www.facebook.com/SWBreast

My guest on this episode of the DiepCJourney podcast is a young woman who during the height of the COVID pandemic, at only 33 years old, became diagnosed with triple negative breast cancer. Her Journey was not easy but, it is truly inspiring and motivating. She has a strong family history of distinct types of cancer. This is a quote from her website: “Tired of reactive approaches, that waited for symptoms to appear, I refused to let history repeat itself. Recognizing that others face similar challenges I knew action was needed." This quote reflects her work, her passion, and her profession. My guest is Rori Zura, who many know from social media as “badass” Foobs and Fitness. The resilience she practiced doing chemotherapy alone during the pandemic translated into the grit and determination discovering her current work. Rori is a Certified Personal Trainer through the National Academy of Sports Medicine. Subsequently, she became a certified Cancer Exercise Specialist with the Cancer Exercise Training Institute. Her message is clear. Studies have shown that exercise can reduce the side effects of breast cancer treatment, reduce risk factors, and minimize the risk of recurrence. As she states on her website, “My goal is to create a tidal wave of change within our healthcare system.” Sit with us and listen to Rori's story to be inspired. Be sure to watch this interview on the DiepCFoundation YouTube channel. Connect with Rori across these platforms: LinkedIn: https://www.linkedin.com/company/foobs-and-fitness/ Facebook: https://www.facebook.com/foobsandfitness Instagram: https://www.instagram.com/foobsandfitness/ Tik Tok: https://www.tiktok.com/@foobsandfitness YouTube: https://www.youtube.com/@foobsandfitness

This episode of the DiepCJourney podcast is our final edition in 2024. I share a discussion across continents with two women leaders I admire who engage in patient advocacy and the patient story. Marie Ennis O'Connor is well known for “Journeying Beyond Breast Cancer” a platform where she gathers writers and bloggers sharing their stories across social media platforms. Her journey in patient advocacy began twenty years ago with a diagnosis of breast cancer. Marie poignantly tells us in the interview that, "We find when we are diagnosed with a serious illness, something is missing. We look around and see who can fix this. I discovered the person who could fix it was me." Sue Robins , whose patient experience started with a breast cancer diagnosis, has focused her healthcare advocacy based on her son, Erin's down syndrome. Like Marie, her healthcare advocacy began about twenty years ago. She is a Senior Partner and Patient Consultant at Bird Comm. I call them both my friends and they grace us with rich information in the realm of storytelling and patient engagement. We take a deep dive and share firsthand experiences, good and bad, about conference attendance, invitations to speak, and how important we feel it is to pass on the wisdom we have learned to the next generation of advocates. We are filled with nostalgic hope of meeting in person some day in Ireland, Marie's home country, on the Wild Atlantic Way, the western side of Ireland. It was my favorite area when I visited there in the fall of 2023 and was able to meet Marie in person in Dublin. Enjoy the final 2024 episode and I look forward to seeing you on the DiepCJourney podcast in 2025 with more exciting guests and topics!!  Connect with Marie across these platforms: LinkedIn: https://www.linkedin.com/in/marieennisoconnor/ Facebook: https://www.facebook.com/beyondbreastcancer Instagram: https://www.instagram.com/marie_ennis_oconnor/ Connect with Sue across these platforms: LinkedIn: https://www.linkedin.com/in/sue--6609147/ Facebook: https://www.facebook.com/sue.squawk.9 Instagram: https://www.instagram.com/suework/ Books: Birds Eye View and Ducks in a Row          

Ten years ago, on December 1, 2014, I was in the trusted hands of a skilled microsurgeon who took tissue from my tummy area along with the skin and blood vessels, and rebuilt what cancer had taken away from me. I lost my breasts to a double mastectomy. For those of us who have been affected by breast cancer, a mastectomy is an amputation. The skilled microsurgeon is my guest on this episode of the DiepCJourney podcast. Dr. Minas Chrysopoulo, president of PRMA in San Antonio, Texas, reconstructed my breasts using the training, skill, and compassion that makes him who he is as a breast reconstruction surgeon and is one of the finest human beings I know. This podcast is a celebration of our work together over the past ten years and the work we will continue to do for the breast cancer community. This podcast is about mentorship, past, present, and future. Join us as we take a walk down memory lane to hear about his own journey becoming who he is today and those who inspired him to chose microsurgery. If you have been in plastic surgery for any time, many of the names he mentions as his own mentors will be familiar to you.  This interview is quiet, thoughtful, and a couple of times catches me off guard emotionally with a mentor and friend. Thank you for listening with us. Connect with Dr. Chrysopoulo on Social Media: Facebook: https://www.facebook.com/DrChrysopoulo/ Instagram and Threads: https://www.instagram.com/mchrysopoulo/ Twitter/X: https://x.com/drchrysopoulo LinkedIn: https://www.linkedin.com/in/drchrysopoulo/

Solutions often begin with a conversation. When faced with the task of planning your surgery, it is the goal of the DiepCJourney podcast to provide a pathway to workable solutions for those affected by breast cancer. My guest is Dr. Andrew Elkwood, an international expert in advanced reconstruction and a highly skilled microsurgeon. Dr. Elkwood is the founder of The Plastic Surgery Center and Institute for Advanced Reconstruction (IFAR) in New Jersey. You can also visit www.advancedreconstruction.com or call 954-218-5137 to schedule a consultation with a surgeon on these advanced and specialty conditions. The surgeons in the IFAR network perform breast reconstruction surgery due to loss of breast after mastectomy from breast cancer. They also perform the following surgery addressing conditions that arise due to breast cancer treatment, many of which are nerve related. ·       Neuropathy ·       post mastectomy pain syndrome ·       lymphedema surgery ·       radiation-induced brachial plexopathy (numbness, tingling, weakness in the shoulder and/or arm Watch the interview on YouTube: Pathways to Care Due to Secondary Issues from Breast Cancer Treatment Follow IFAR on Social Media: Instagram Facebook YouTube      

What is it about social media that draws the breast cancer community together? We are going to explore this question with my guest, Dr. Tasha Gandamihardja, consultant breast cancer surgeon and medical educator on social media under the name, @DrTashaG. We will look at the benefits, downfalls, information, and disinformation provided by various social media platforms on this episode of the DiepCJourney podcast. How can you find the right community that supports both your emotional and educational needs when each person is unique and there are distinct types of breast cancer? Why is it important for physicians to interact and be active on social media? Is it necessary for them to be on social media? I have the distinct honor of being listed as an author on a published paper with her that we will discuss in our conversation. The paper is open access and is entitled, “The Role of Social Media and Breast Cancer: How Does It Impact Patients?”  I acknowledge our fellow colleagues and authors on the paper: ·       Sara Liyanage, author, and patient advocate ·       Dr. Anne W. Peled, dual-trained breast cancer and plastic surgeon. ·       Yazan A. Masannat of the UK, consultant oncoplastic breast surgeon and host of the iBreast webinar series. Patients who are newly diagnosed with breast cancer often absorb a small percentage of the information they are flooded with at their first consultation. Dr. Tasha tells us how she gently navigates patients through this journey by providing resources to explore while at home and making decisions about next steps. Dr. Tasha tells us social media can provide a complementary resource for patients to feel connected to a like-minded community to share similar experiences. But there can be limitations and challenges finding the right community. We focus on exploring communities that provide evidence-based information, so patients get the right information and tamp down the misinformation that is found on social media. Where is the future of information for the breast cancer community? We explore the value and impact of AI and how we feel it is our responsibility as curators of content to guide the breast cancer community in the use and value of AI in finding information. Dr. Tasha social media accounts: Instagram TikTok YouTube My Breast My Health Podcast LinkedIn  

In this episode of the DiepCJourney podcast I interview April Johnson Stearns. She is the founder and Editor-in-Chief of Wildfire Magazine & Writing Community. April has an extensive background in writing and landed her first memoir-based magazine cover story at 16. She worked for her college newspaper and then the local newspaper in Santa Cruz, The Sentinel, following graduation. During the tech boom of the early 2000s April worked “over the hill” from Santa Cruz in Silicon Valley. However, in 2012, in the midst of this career, April was diagnosed with Stage 3 breast cancer at age 35. Four years later, while struggling to “go back to normal” and find others in similar circumstances, April launched WILDFIRE Magazine & Writing Community as a way for younger people to tell and read breast cancer stories. Since 2016, April has guided hundreds of writers through the Wildfire writing workshops and published more than forty-five issues of Wildfire Magazine. April shares the passion behind the magazine and her work with the young breast cancer community inspiring them to share their stories. She hosts her own podcast The Burn where she interviews writers in the Wildfire community. Connect with April and the Wildfire Community: Wildfirecommunity.org Facebook: facebook.com/wildfirecommunity Instagram & Threads: @wildfire_bc_magazine Twitter: @real_wildfire Email: editor@wildfirecommunity.org

Are you aware of the value of the two-surgeon model in reconstructive microsurgery? Have you heard about the benefits to patients of ERAS (Enhanced Recovery after Surgery) protocol? I spoke with two board-certified plastic reconstructive surgeons who practice at Tucson Plastic Surgery to answer these questions and others on this episode of the DiepCJourney podcast. My guests are Dr. Siliva Kurtovic and Dr. Raman Mahabir. They met at the Duke Flap Course, a well-known yearly gathering of microsurgical specialists from around the world who present the latest techniques in flap surgeries. Their combined training in breast reconstruction microsurgery and aesthetic plastic surgery offers their patients affected by breast cancer skilled and compassionate care. We shared personal stories, our combined interested in the shared decision-making model in breast reconstruction, and how surgeons and patient advocates can work together to educate patients on all options and aspects of the breast reconstruction decision making process. Dr. Kurtovic gives us her personal approach to caring for patients before and after surgery in a holistic manner to enhance emotional and physical recovery from DIEP flap surgery. This dynamic team in Tucson, Arizona, who started as surgical colleagues at Duke University, share their personal story from the start to their present-day life. Not only are they changing the lives of breast cancer patients in their region, but you will hear about the beautiful family life they have created in this desert landscape I called home at the time of my second diagnosis. Although they were not in Tucson at the time of my second diagnosis, I am happy for those patients who are there now for this access to care with Dr Kurtovic and Dr. Mahabir. Be sure to watch our interview on the DiepCFoundation Educational Channel Connect with Dr. Mahabir and Dr. Kurtovic: Facebook: https://www.facebook.com/TucsonPlasticSurgery Instagram: https://www.instagram.com/tucsonplasticsurgery/ LinkedIn: Dr. Kurtovic: https://www.linkedin.com/in/silvia-kurtovic-md-b0491532/ Dr. Mahabir: https://www.linkedin.com/in/rcmahabir/  

When you think about breast reconstruction do you only think about breast implants? If so, it is because many people are still choosing this option for reconstructing their breast after mastectomy. However, there are options. Using your own tissue is an option and the tissue, along with a blood source, can come from various parts of the body. Fat grafting to shape and form the breast is also an option many ask about but not all know about. This is our topic on this episode of the DiepCJourney podcast. My guest, Dr. Eric Wimmers, is a board-certified plastic and reconstructive surgeon practicing in Hopewell, New Jersey at the Plastic Surgery Center. He is part of the Institute for Advanced Reconstruction (IFAR) network of surgeons across the U.S. Dr. Wimmers has unique training in microsurgery and immunology. Although he operates on the entire body, his special interests are breast reconstruction, abdominal wall reconstruction, and peripheral nerve repair. His pathway to his current practice as a microsurgeon developed over time. Dr. Wimmers shares his personal journey with us from beginning as an emergency room physician to a surgeon. Once he had exposure to the scope of plastic surgery, restoring form and function to the human body affected by trauma and disease he never looked back. Dr. Wimmers shares the value of his surgical practice being part of the IFAR network. He points out that they are grouping up with other like-minded microsurgeons across the U.S. to tackle problems and issues patients face when they have been told there is no hope or fix. Combined resources and talent within the IFAR network are providing greater access to care for patients. We continue our discussion with an explanation of the types of breast reconstruction available. Dr. Wimmers utilizes the tummy tissue most often to perform DIEP flap breast reconstruction. However, he points out not all patients have the excess tissue in their own body in the right places to do autologous reconstruction, meaning using the patients own tissue. He does get inquiries about fat grafting only. Patients are interested in it for a variety of reasons. It might be that they have already had a tummy tuck. It may be that their fat distribution is in other places other than the abdomen. Most of his patients requesting fat grafting only tend to be on the smaller side and prefer a smaller size breast. He explains the fat grafting only procedure in detail in our interview. Dr. Wimmers tells us fat grafting only is a series of procedures done over time. Fat grafting is a very technique driven procedure. Be sure to watch our interview on the DiepCFoundation Educational Channel Connect with Dr. Eric Wimmers: Facebook: https://www.facebook.com/DrEricWimmers/ Connect with The Institute for Advanced Reconstruction: Facebook: https://www.facebook.com/AdvancedReconstruction Instagram: https://www.instagram.com/advancedreconstruction/ X/Twitter: https://x.com/AdvancedReconNJ

Breast sensation, “sensibility,” is a topic I personally cannot talk enough about. Breast cancer patients want to be protected from burns. They want to feel the hugs from their children, grandchildren, partners, friends, and family. Sensibility refers to awareness, emotional response, and feeling so it makes perfect sense to use this word in our conversation on this episode of the DiepCJourney podcast. To be honest, the feeling of numbness that many feel after a mastectomy just feels odd. I speak from experience, and I listen to other survivors who tell me this. It felt odd for me, but I was fortunate to have nerve reconstruction at the time of my DIEP flap and now have sensate breasts, thankfully. I feel that my breasts are part of my body. I feel so fortunate today to be speaking to a world leader in breast sensation/sensibility. You will learn so much from her in our discussion. I first met her at the London Breast Meeting in September of 2023. This is one of the leading breast meetings in the world. Her talk absolutely mesmerized me. I saw her again in January of this year, 2024, at the microsurgery meeting and we said, this podcast needs to happen. She is approachable, warm, and accessible. Dr. Stefania Tuinder performs complex microsurgical breast reconstruction at the Maastricht hospital in the Netherlands. Dr. Tuinder has published multiple papers on this topic. I was inspired by a mutual friend, Mr. Vimal Gokani, who mentioned Dr. Tuinder and her work with sensibility and neurotized breasts on his podcast, PRS Global Open, DEEP cuts. Sensation and sensibility are something women talk about and deal with after autologous breast reconstruction. I'm fascinated with neuroplasticity and how are brains can adjust to these new sensations. Links to papers published by Dr. Tuinder: What does a breast feel like? A qualitative study among healthy women Sensory recovery and the role of innervated flaps in autologous breast reconstruction—a narrative review Somatotopic mapping of the human breast using 7 T functional MRI Connect with Dr. Tuinder: Email: s.tuinder@mumc.nl LinkedIn: https://www.linkedin.com/in/stefania-tuinder-0440176b/ Instagram: https://www.instagram.com/stefania_tuinder/

This edition of the DiepCJourney podcast highlights a recently published paper in JPRAS, an International Journal of Surgical Reconstruction. The title of the paper is: Flap neurotization improves sensation outcomes in abdominally based autologous breast reconstruction: A systematic review and meta-analysis. To our listeners, who may be patients, surgeons, or medical professionals we are going to explore the elements and details of this research paper and how it can be of benefit to you. I am pleased to have two returning guests who have collaborated across continents from Australia to the U.S. sharing their combined microsurgical skills to improve patient outcomes in sensate breasts. Dr. Joe Dusseldorp is an author of the paper and an internationally trained microsurgeon who practices in Sydney, Australia. He works alongside oncologists to perform innovative treatments for breast reconstruction, which includes DIEP flap. He is a TEDx speaker, a fellow of the Royal Australasian College of Surgeons, Australian Society of Plastic Surgeons, Faculty of Medicine at University of Sydney, and affiliated with the Chris O'Brien Lifehouse. My second guest, Dr. Minas Chrysopoulo, is the current president of PRMA, Plastic Reconstructive Microsurgical Associates, in San Antonio, Texas. Dr. C is a board-certified plastic surgeon, breast reconstruction surgeon and microsurgeon who like Dr. Joe, performs autologous based breast reconstruction. Raised and educated in London, England he has earned and received many academic achievements throughout his career. He continued his microsurgical training after moving to the U.S. and has authored and co-authored several book chapters and scientific articles in peer-reviewed journals. He is the developer of the award-winning free Breast Advocate® app that provides anyone with breast cancer a much-needed voice in their breast cancer surgery decision making. Connect with Dr. Joe Dusseldorp: LinkedIn: https://www.linkedin.com/in/joedusseldorp/ Instagram: https://www.instagram.com/drjoedusseldorp/ Facebook: https://www.facebook.com/joe.dusseldorp X: https://x.com/drjoedusseldorp Links to find the work of Dr. Minas Chrysopoulo: LinkedIn: https://www.linkedin.com/in/drchrysopoulo/ Instagram: https://www.instagram.com/mchrysopoulo/ Facebook: https://www.facebook.com/DrChrysopoulo X: https://x.com/drchrysopoulo

In this episode of the DiepCJourney podcast I am joined by another podcaster. What I am most excited about is that he is one of our international guests this year. We have known each other for some time. Not trying to age either one of us but I have enjoyed knowing him, having robust conversations, and learning so much about the world of plastic surgery and microsurgery from him. We will talk about these topics in the podcast in a cross-continental discussion with my guest Mr. Vimal Gokani. Notice I said, “Mister.” That is because he is a well-respected microsurgeon in the UK and rather than Dr. as we refer to physicians in the U.S. they are bestowed the honor and title “Mr..” Mr. Gokani is a consultant plastic reconstructive surgeon at Imperial College Healthcare NHS Trust with expertise in: ·       Lymphoedema surgery ·       Skin cancer surgery ·       reconstructive surgery following breast cancer and other types of cancer. ·       body contouring following weight loss. ·       abdominal wall reconstruction and… ·       aesthetic surgery of the breast, body, and face. We are going to find out in this interview how he became interested in plastic surgery, and we will discuss some of my preferred topics to talk about: ·       Diep Flap ·       Lymphedema treatment service and surgery ·       Neurotized breast… restoring sensation to the breast. ·       And robotics surgery… where are we and what does the future look like in robotics. Please be sure to go to Spotify and check out his podcast: PRS GLOBAL OPEP DEEP CUTS where he interviews notable colleagues in his field. Mr. Gokani Social Media Links: LinkedIn: https://www.linkedin.com/in/vimal-gokani-251b3336/ Instagram: https://www.instagram.com/vimal.gokani/  

Consider a young person who has been newly diagnosed with breast cancer. Add to the mix they are facing a mastectomy and exploring options for breast reconstruction. Let's say they are someone who has grown up in the world of social media. The question arises, where do they connect and get their credible information? Breast reconstruction is a complex decisional process. Do they use a platform like TikTok based in thirty second increments or a more community-based platform like Meta/Facebook where patients can engage in more of a discussion about what they are facing after a horrible diagnosis? What are other platforms being utilized? It is our topic of discussion on this episode of the DiepCJourney podcast with my guest, Dr. Andrew Gassman, a board-certified microsurgeon who sees this population of women in his practice each day. He collaborates with a team of microsurgical specialists at PRMA in San Antonio, Texas. Their primary practice focuses on those affected by breast cancer, are facing mastectomy, and are exploring options for breast reconstruction. PRMA practices the co-surgeon model where each patient has two skilled microsurgeons in the OR for their autologous breast reconstruction surgery. We ask our listeners to share the platform they use to find credible information on social media when newly diagnosed and considering breast reconstruction. Please share your comments after listening to the podcast. We do not feel that one platform or channel is more important than another. It is our aim to share our thoughts, but we want to hear from you. We honor your choice in social media selection. Another way of sharing your thoughts with us is by reaching out on either one of our social media accounts. Dr. Gassman Social Media Accounts: Facebook: https://www.facebook.com/dr.andrewgassman Instagram: https://www.instagram.com/gassman_ps/ Terri Coutee Social Media for DiepCFoundation: Facebook: https://www.facebook.com/diepCfoundation.org/ Instagram: https://www.instagram.com/diepcfoundation/ Twitter/X: https://x.com/6state LinkedIn: https://www.linkedin.com/in/terricoutee/

Access to medical care for those affected by breast cancer is crucial, and often life transformative. This personal story will give emphasis to the voice of an advocate, a woman of strength, and determined to find the best care available for her during her personal journey from diagnosis to recovery from reconstructive surgery. My guest on this episode of the DiepCJourney podcast is Dana Brown, a 54-year-old wife, mother, and educator. She has been married to her best friend and soulmate for 35 years. She was intent on finding a well-qualified microsurgeon to perform her DIEP flap breast reconstruction after enduring multiple surgeries, chemotherapy, and radiation. It turned out to be a formidable task but one she tackled head on. After researching other practices around the country, she was able to find one in her state. She found Dr. Kasia Kania to perform her breast reconstruction. Dana's voice waivers when she tells us the words Dr. Kania spoke to her at their initial consult, "I can fix that."  Together, they wrote appeals to state insurance to obtain the best possible care for Donna.  She is now in recovery from her successful DIEP flap with Dr. Kania. The lesson to be learned is one of perseverance and stopping at nothing until one finds the best surgeon to perform what is for many a life-changing surgery after loss of breasts due to breast cancer. Dana's story is not unique. There are many who must fight to gain access to care. It can be emotionally and physically exhausting but with Dana's determination and the combined efforts and support of her family and surgeon, she made it happen. The listener will draw many lessons and tips from my guest. It was a touching interview and I value the honest account of Dana's experience helping others. Dana's social media account: Instagram: https://www.instagram.com/drdanajo/ Dr. Kasia Kania's social media accounts and information: Instagram: https://www.instagram.com/drkasiakania/ Instagram: https://www.instagram.com/taylorplasticsurgery/ LinkedIn: Kasia Kania, MD, MPH Facebook: Taylor Plastic Surgery   

This is a special episode of the DiepCJourney podcast. It is one of the most touching interviews I have done to date. Originally recorded during the pandemic as a video, I searched through my audio archives hoping I might find it to repurpose the interview. Thankfully, you can now listen to the interview as a podcast. I added a special tribute at the beginning of the podcast to honor my own Father and share the intrinsic value and meaning of the necklace I wear. Next, I honor the mentor, Dr. Minas Chrysopoulo, who changed the trajectory of my work in 2016 encouraging me to open DiepCFoundation. The interview is a tribute to his own dad, the inspiration and story of why he chose microsurgery as his profession. Dr. C weaves in the history of microsurgery, riveted by the stories of soldiers during WWI and WWII that he watched on the “telly” with his dad during his childhood. You must listen to his account of Howard Gillies, the pioneering surgeon who treated facial injuries and pioneered the use of skin flaps in plastic surgery. The pauses in his voice, the reflection in his words, parallel the ethos of my dad. These conversations in life are important to reflect upon and what brought us to choose our purpose in life. Mentors are leaders. They guide us, teach us, and counsel us. This quote from Steven Spielberg summarizes it beautifully. Thank you for being that mentor in my life Dr. C, and I feel it reflects the feeling we both have for our dads and one I am certain your children feel about you. "The delicate balance of mentoring someone is not creating them in your own image but giving them the opportunity to create themselves." ~ Steven Spielberg More on the history of microsurgery: Flap Monitoring in Breast Reconstruction and the History of the Guinea Pig Club in Plastic Surgery Dr. Chrysopoulo social media accounts: Instagram: https://www.istagram.com/mchrysopoulo Facebook: https://www.facebook.com/DrChrysopoulo LinkedIn: Minas Chrysopoulo, MD, FACS Twitter: @drchrysopoulo Dr. C's FREE breast cancer health app: Breast Advocate®

Imagine a world where a specialist surgeon on one continent could be virtually transported into any operating room of another surgeon specialist, anywhere in the world, to collaborate with one another visually and practically. That is now a reality with the Proximie system, an augmented reality telehealth platform and innovation in education and global surgery. Dr. Nadine Hachach-Haram if the Founder of Proximie. She shares the story of her childhood and the events that made a lasting imprint on her memory growing up in Lebanon. She learned a lot about community, people coming together and sharing and supporting each other. Seeing the resulting injuries of war and the effects it had on friends who experienced injuries led her to understand the importance and role of doctors. Her family had a profound influence on her trajectory into medicine, innovation and narrowing the gap in access to care. This became of great interest to Nadine as her own career in plastic surgery progressed. We discuss the collection of knowledge in the library database of the Proximie system and the ongoing value it has in surgical education and learning. I mention to Nadine the honor I had speaking to Dr. Joe Dusseldorp and Dr. Minas Chrysopoulo about their Proximie experience during a DIEP flap procedure. It was seamless connectivity for these two surgeons and delightful to share their experience using Proximie across continents. At the heart of this it is patients for access and quality of care. Nadine has accomplished this by reimagining the future of healthcare through the Proximie system. Our thoughts conclude the podcast sharing the importance of leaving a legacy of your work and what inspired me to invite Nadine to be interviewed on the DiepCJourney podcast. I am grateful! Learn more about Nadine's work and the topics I reference in the podcast: Nadine's Ted Talk: Digitization in Healthcare Delivery LinkedIn: Dr. Nadine Hachach-Haram FRCS (Plast), BEM Instagram: drnadz_j Instagram: Proximie Democratization in Microsurgery: The Proximie System with Dr. Joe Dusseldorp and Minas Chrysopoulo, MD, FACS  

Are you feeling anxious or confused about what to eat if you have had or currently have breast cancer? My returning guest on this episode of the DiepCJourney podcast is Cathy Leman. She is a dietician, nutrition therapist, and a certified personal trainer, who herself has had hormone positive breast cancer. Cathy developed the Peaceful Plate, a nutrition education and coaching program. She shares her personal experience being diagnosed with breast cancer. We are discussing how to mange the anxiety that can plague many who have had breast cancer and what to put in our bodies in the form of food to optimize our health. We will chat about the food choices we can make to maintain a healthy lifestyle just as exercise choices are made to maintain our health. Cathy dives into reasons for emotional eating, weight gain from breast cancer treatment, questions around soy consumption, how much protein we should consider consuming and what healthy protein options there are. She shares portion control amounts, and we discuss how much fiber we should consider consuming per day. Cathy and I discuss realistic expectations regarding exercise for those in treatment and post treatment in survivorship. Movement in all forms is the key adjusted accordingly to your current health status. We hope this episode will encourage and inspire you to enjoy what you eat before, during, and after breast cancer! Podcast Episode with Cathy: Episode 23: Dietitian and Coach for Breast Cancer Survivors Cathy Leman Social Media Accounts: Instagram: Cathy Leman Hormone Breast Cancer Dietitian Facebook: The Peaceful Plate LinkedIn: Cathy Leman, MA, RD, NSCA-CPT

Have you searched endlessly for days and weeks for a microsurgeon to perform breast reconstruction? Access to care is a real concern for patients who are affected by breast cancer. Finding a plastic surgeon who specializes in tissue reconstruction in the area you live in is not always a service afforded to all patients. Traveling for breast reconstruction is not out of the ordinary. It was something I did myself for my DIEP flap. I want to bring awareness to microsurgical services in various geographic areas and interview surgeons to help patients who are looking for a reconstructive surgeon. I am introducing a new surgeon to our listeners. I hope this helps streamline the time you are taking during an already challenging time in your life. Dr. Sarosh Zafar is a double board-certified microsurgeon in plastic and reconstructive surgery and general surgery. She specializes in the most advanced methods of breast reconstruction, complex reconstruction, and microsurgery. Dr. Zafar joined the team of pioneering surgeons at (CRBS) the Center for Restorative Breast Surgery and the St. Charles Surgical Hospital in 2021. She practices in the state of Louisianna but takes patients from across the U.S. and the world. Dr. Zafar shares why she chose the field of plastic and reconstructive breast surgery. She tells us the services provided at CRBS highlighting the value of the co-surgeon model in breast reconstruction surgery. Dr. Zafar shares the pathways to find her services both at CRBS and IFAR (Institute for Advanced Reconstruction), part of the Advanced Reconstructive Surgery Alliance (ARSA) network of surgeons. Her compassionate comment at the end of the podcast will benefit patients listening. “If patients have any questions, never hesitate. That would be my number one message. Always ask. Always ask us for clarification. It can be a very confusing, intimidating process, but that's what we're here for to help figure everything out and help you get the best outcome that we can.” Links to find Dr. Sarosh Zafar: Center for Restorative Breast Surgery (CBRS) The Institute for Advanced Reconstruction (IFAR) (IFAR) Patient Portal to Schedule an appointment: tel:1-833-887-2417 Social Media Links for Dr. Sarosh Zafar: Dr. Sarosh Zafar: LinkedIn Facebook: Center for Restorative Breast Surgery Instagram: Breast Center NOLA  

I have been fortunate to have discussions with surgeons in the U.S. on lymphedema. This is a topic I feel should be discussed with international surgeons as well. As part of my work with DiepCFoundation I am fortunate to meet surgeons from around the world at various plastic and microsurgical conferences. I will be talking to one of these microsurgeons on the DiepCJourney podcast. We need to know all we can about lymphedema, lymphedema surgery, how microsurgeons across the world are treating breast cancer patients for this condition, and so, this is our topic of discussion from a guest in London, in the United Kingdom. Ms. Maleeha Mughal is a Consultant Plastic & Reconstructive Surgeon at Guy's & St. Thomas Hospital. She specializes in Breast cancer reconstruction, Head and Neck cancer reconstruction and lymphedema surgery.  Ms. Mughal shares a personal story and why she made the decision to choose plastic reconstructive surgery as her profession. She describes the type of lymphedema she treats, the type related to cancer. We discuss the causes, treatment, and surgical options for a condition that is not curable but treatable. One of the most important points in our discussion is early treatment and what symptoms to watch for. The sooner lymphedema is treated, the better the management of the conditions related to lymphedema. Lymphedema can affect a person's quality of life and ability to perform daily tasks and work. Links to Important Resources and Ms. Mughal's LinkedIn Account. British Lymphology Society Breast Cancer Now: A Research and Support Charity in the UK Ms. Maleeha Mughal: LinkedIn      

The two-surgeon model in microvascular breast reconstruction and concerns about insurance coverage is a topic we are tackling on the DiepCJourney podcast. I have NOT come to understand the complexities of insurance but have gained a great deal of empathy for those in the breast cancer community who deal with these complexities, and that includes patients and surgeons. I was certain I needed to invite a guest I was completely comfortable discussing this topic with. We go back a bit. I have built trust in his principles over time and his focused passion on patient education. You have heard him on the podcast before, but he has gained a great deal of respect in the global community of microvascular breast reconstruction. I honor our listeners by introducing a friend, a patient-advocate champion, and someone I know will help me feel more comfortable tackling the subject matter and discussion of the podcast. Dr. Minas Chrysopoulo is the current president of PRMA in San Antonio Texas. He knows a thing of two about microvascular breast reconstruction having performed over twelve thousand various breast reconstruction flap procedures with his team of colleagues at his practice. He is the Founder and Developer of the award-winning Breast Advocate app, a free breast cancer healthcare app providing the user with all your surgical options, a plethora of evidence-based resources, and a customizable and adaptable patient experience through the wizard, along with a community feature of like-minded users to share information with. I have chosen this topic not to appear to be controversial. It is a topic that can stir emotions, and I have seen it presented in what I can only describe as a dramatic way. That will not be the type of presentation on this podcast today. I am discussing this topic now because of a heightened sense of concern regarding insurance coverage using the two-surgeon model, sometimes referred to as co-surgeon model in DIEP flap and microvascular breast reconstruction. Studies on the Co-Surgeon Model: 1.     https://onlinelibrary.wiley.com/doi/abs/10.1002/micr.30191 2.    https://journals.lww.com/plasreconsurg/abstract/2022/02000/microvascular_breast_reconstruction_in_the_era_of.8.aspx  Links to other topics we discuss in the podcast: DiepCFoundation Video: The Value of a Consistent Breast Reconstruction Surgical Team S-code issue of 2023: The Patient Voice Has Been Heard! ERAS Protocol: ERAS Protocol in Breast Reconstruction Dr. Chrysopoulo Social Media Accounts: Instagram: https://www.instagram.com/mchrysopoulo Facebook: https://www.facebook.com/DrChrysopoulo LinkedIn: Minas Chrysopoulo, MD FACS Twitter: @drchrysopoulo  

Whether you have had a breast cancer diagnosis, have a genetic mutation placing you at high risk of getting breast cancer, have had or are facing a mastectomy due to either of these situations you will want to listen to this episode of the DiepCJourney podcast. The time has come to share a personal story of a woman I interviewed twice about her decision to have a prophylactic mastectomy and implant reconstruction. This is the continuation of her Journey. She came to a decision to exchange the implants she never quite felt comfortable in and transition to DIEP flap breast reconstruction and use her own tissue this time around. Margaret Tueller Proffitt has a delightful Instagram account and describes herself as a lover of books, learning and travel. She is a Mom to four, wife to one, and friend to all. I am honored to have my friend Margaret on the podcast. On a recent trip to San Antonio to do advocacy work for DiepCFoundation, I visited PRMA where I had my own reconstruction. I received a text from Margaret mentioning her desire to transition from implants to DIEP flap. More importantly, she told me she was considering PRMA and wanted to know who I would recommend. Knowing Margaret as I do, I gently guided her to contact Dr. Lauren Whipple. In the weeks following that text, I watched and waited until her surgery date, answering more questions, and guiding her through a very familiar experience to me, traveling for DIEP flap. There are so many similarities to our story. We had the same breast surgeon perform our mastectomy in Tucson where both of us lived at the time and Margaret still does. The similarities grew when I found out who would be the co-surgeon with Dr. Whipple the day of Margaret's DIEP flap. Dr. Minas Chrysopoulo, the surgeon who performed my DIEP flap, would be working alongside Dr. Whipple that day. PRMA uses the two-surgeon model for all their patients that have autologous breast reconstruction. I am delighted to share Margaret's story with the listeners. She discusses preparations, traveling to and from her surgery, her support, and caregivers, where she stayed, recovery, and what she is looking for to for phase two surgery. Learn more about resources mentioned and topics related to the podcast: Video tour with Dr. Chrysopoulo of Methodist Landmark where Margaret had surgery. First video with Margaret: A BRCA Story of Surveillance Through Prophylactic Mastectomy. Second video with Margaret: Two days before Margaret's implant-based prophylactic mastectomy. Connect with those mentioned in the Podcast: Margaret's Instagram account PRMA's Instagram account Dr. Minas Chrysopoulo on LinkedIn  

Have ever been you curious about the networking, conversations, and education that happens among colleagues at medical conferences? Or are there topics you see online but are not aware of the stories behind the social media posts from these conferences? I invite a returning guest to give you a behind the scenes look at one such conference, the annual conference of The American Society of Reconstructive Microsurgery. We chose a few highlights and topics from the conference to share our experience so you can learn more about these rich learning events. Here to share the highpoints and a few of our favorite topics is one of the presenters at the conference himself, Dr. Minas Chrysopoulo. He is the current president of PRMA in San Antonio, Texas who works with a team of nine microsurgeons that perform primarily tissue-based breast reconstruction for those affected by breast cancer. He is a welcome returning guest to the DiepCJourney podcast. In addition to his microsurgical prowess, he is an entrepreneur. Dr. Chrysopoulo founded Toliman Health and is the creator of Toliman's flagship award winning app, Breast Advocate app, the first shared decision-making app for breast cancer surgery and breast reconstruction. He begins by highlighting the diversity of global skill represented at the conference sharing the moving moment when the “Best Case/Best Save” presentations were made. This is the most attended session at the meeting. It is a packed room. This year's winner was an especially inspiring case of a young Ukrainian woman whose lower face was reconstructed due to a horrific shrapnel injury and repaired by Dr. Adam Maciejewski of Poland. We touch on the keynote address from CEO and Founder of the Proximie Surgical Learning Platform System, Nadine Hachach-Haram. Dr. C points out the mission of the Proximie system is to expand surgical education and improve patient access to surgical expertise. We revisit other topics like breast sensation, shared decision-making, and patient advocacy. Links to these topics can be found below. Dr. C congratulates the ASRM team for putting together another impressive conference from global leaders in microsurgery. We are happy to share our experience. Learn more about resources mentioned and topics related to the Podcast: JAMA article on AI and chat box responses Shared Decision-Making blog with Dr. Chrysopoulo DiepCJourney podcasts on Breast Sensation Connect with those mentioned in the Podcast: Dr. Minas Chrysopoulo on LinkedIn Dr. Nadine Hachach-Haram (Plast) BEM on LinkedIn American Society of Reconstructive Microsurgery: Instagram  

This episode of the DiepCJourney podcast is well-timed to publish on March 1, 2024, the first day of lymphedema awareness month. We hope you will share this in your community for breast cancer patients affected by lymphedema to provide them with the resources needed to treat this condition and let them know there are specialists in surgical treatment options as well. My guest is one such specialist. Dr. Charles Anton Fries is Chief of Plastic Surgery and faculty surgeon at UT Health San Antonio and works as a microsurgeon with the team at PRMA, Plastic Reconstructive Microsurgical Associates, in San Antonio. It is important for listeners to understand the function and importance of the lymphatic system. Dr. Fries begins by explaining this and what can happen during breast surgery of any kind. He describes how the pumping mechanism that is the lymphatic system is compromised with patients who present with lymphedema. Anything that damages or interrupts the lymph circulation can cause lymphedema as in axillary dissection and breast cancer surgery. Radiation adversely affects the muscle of the lymphatic system and can also cause lymphedema. Dr. Fries tells us some of the symptoms at the beginning are heaviness and swelling from the accumulation of fluid. This is the time to start intervening with treatments to prevent progression. Lymphedema is incurable and progressive. He shares with us that compression, massage, and pumps are affective in managing the progression of lymphedema and the burden of fluid that can accumulate. He points out the importance of patients taking a holistic approach to the management of lymphedema including maintaining a healthy weight. One such study shows there is a real correlation between obesity and severity of lymphedema. We continue our discussion with surgical options both in the office and in the surgical theater. Dr. Fries and I touch on issues with insurance coverage, and he proudly shares that one of his own patients was an advocate working for insurance coverage for the treatment of lymphedema.   Links we discussed in the podcast: PRMA lymphedema measurement chart: https://prma-enhance.com/wp-content/uploads/2021/03/Lymphedema-Chart.pdf YouTube video of the Podcast with Dr. Fries: https://youtu.be/PlY5lb14ovY?si=Jyr7v-p2RhYuDpSD Dr. Fries Social Media Accounts: Instagram: https://www.instagram.com/antonfriesplasticsurgery/ Facebook: https://www.facebook.com/AntonFriesMD LinkedIn: https://www.linkedin.com/in/anton-fries-md-phd-a4167318/ Twitter (X): https://twitter.com/AntonFries

This episode of the DiepCJourney podcast shares a fascinating story of a young woman who graciously and professionally takes us through her Journey from being diagnosed with breast cancer, cold capping, the affect on her family and young daughters, and to the story of her DIEP flap breast reconstruction.   She never felt a lump. She was enrolled in a high-risk program based on her family history. Because of this, she found the cancer early.   My guest is Lacey Terpstra-Reid. She is a registered nurse residing in Guthrie Oklahoma. In November 2022 she was diagnosed with triple positive breast cancer at age 33. Lacey has over 10 years of bedside experience as a nurse from working in a cardiac ICU where she cared for countless ECMO patients to her current role as an outpatient surgery recovery RN. She is a young mom to 3- and 2-year-old girls. She has spent this past year navigating her cancer treatments while chasing toddlers.   Lacey was familiar with the science behind the T-Stat flap monitoring system. In her work as an ECMO nurse she understands the parralels and how the oxygenation and blood flow that the T-Stat monitor used to monitor her flaps.    Links to other topics we discuss in the podcast:   ERAS Protocol in Breast Reconstruction with Dr. Minas Chrysopoulo   DiepCJourney Facebook Support Group   Dr. Nabil Habash   How to Prepare for and Have a Shared Decision-Making Conversation  

With any type of surgery there are risks and possible complications. We are tackling a topic on this episode of the DiepCJourney podcast that is frequently discussed in the community served at DiepCFoundation. I reached out to an expert in the field for our discussion on fat grafting in breast reconstruction. Dr. Emily A. Williamson founded Plastic Surgery Northwest in Spokane Washington in 2010 after completing her surgical training at the prestigious University of Washington Plastic Surgery Residency. She works with a group of five other surgeons performing various aesthetic and plastic surgery procedures including autologous breast reconstruction like DIEP flap. Preoperative patient education and counseling is imperative to minimize fears about fat grafting. Dr. Williams discusses how a skilled surgeon minimizes the occurrence of fat necrosis for both implant-based and autologous breast reconstruction. She describes how fat is utilized to achieve symmetry but also signs and symptoms of fat necrosis and what can be done for patients who develop this after a fat grafting procedure. Recent study from France: Oncological Safety of Autologous Fat Grafting in Breast Reconstruction after Mastectomy for Cancer: A Case-control Study Article from the Cleveland Clinic: Autologous Fat Grafting For Breast Reconstruction: Safe but Worrisome to Patients Social Media Links for Dr. Emily A. Williamson: Facebook: Plastic Surgery Northwest Instagram: emilywilliamsmd

There is hard science to support the benefits of exercise for those who are affected by cancer of any kind. We will discuss this on this episode of the DiepCJourney podcast. The good news is that now the National Accreditation Program for Breast Centers (NAPBC) introduced new standards in January of 2024 for exercise oncology. Supporting this initiative is Maple Tree Cancer Alliance. Nationally there are around sixty-five hospitals and locations Maple Tree Cancer Alliance is partnering with to help patients and the medical community implement these changes to improve the lives of those affected by cancer. I am speaking to the Founder and CEO of Maple Tree Cancer Alliance, Karen Wonders, PhD, and their Chief Medical Officer, Dr. Jay K. Harness. They discuss the origins of Maple Tree and how it has grown internationally to provide free exercise training to thousands of cancer survivors. Their program is based on science and evidence with more than seventy peer reviewed manuscripts on the topic of exercise and cancer recovery. Leading organizations across the world are supporting these efforts. We discuss the following organizations in our conversation: American Society of Clinical Oncology (ASCO) American Cancer Society American Society of Breast Surgeons Clinical Oncology Society of Australia (COSA) American College of Sports Medicine You can reach out to Dr. Wonders an Dr. Harness on LinkedIn here: Karen Wonders Dr. Jay Harness Maple Tree Cancer Alliance  

Millions of women across the globe have undergone breast augmentation using a medical device called a breast implant. This is done for reasons such as cosmesis, sometimes called enhancement of the breast, but also for trauma to the chest wall or for oncological reasons meaning breast cancer. Any surgery is not without risks. Using a medical device like a breast implant is not different. This is the focus of our discussion on this episode of the DiepCJourney podcast. My guest is a leading expert in the field. We are going to discuss the medical definition, symptoms, diagnosis, and treatment BIA/ALCL. This stands for breast implant associated anaplastic large cell lymphoma. It is an uncommon form of ALCL. I am speaking to Dr. Mark Clemens. After receiving his Medical Doctorate from Pennsylvania State College of Medicine, Dr. Clemens completed his Plastic Surgery residency at Georgetown University. In 2010, he came to the University of Texas MD Anderson Cancer Center in Houston, Texas where he completed a fellowship in Microvascular Reconstructive Surgery. Dr. Clemens is an active researcher whose interests include BIA-ALCL, long term implant outcomes, robotic-assisted, microvascular, and reconstructive surgery of the breast. He is the author of the book, Phoenix Rising: Empower & Transform Through Breast Reconstruction. I am honored to list this book on the DiepCJourney Resources tab under Books. Links to Dr. Clemens social media links can be found here: LinkedIn: Mark Clemens MD, MBA, FACS Facebook: faceook.com/clemensmd Instagram: instagram.com/mclemensmd/ Twitter: twitter.com/clemensmd

I feel twice fortunate to be speaking to my guest on this episode of the DiepCJourney podcast on two topics, her specialty of performing DIEP Flap breast reconstruction and her role as conference scientific chair for the London Breast Meeting. It was a phenomenal experience for me to meet her in person at the London Breast Meeting where I learned a great deal from the game-changers in breast surgery, oncology, and breast reconstruction. This gives me the ability to bring more in-depth information to the listeners and breast cancer community we serve at DiepCFoundation. I am speaking with Marlene See, a consultant in plastic and reconstructive plastic surgery at Guys and St. Thomas Hospital, part of the NHS Foundation Trust in London. Marlene's specialists interests are breasts and microsurgical breast reconstruction. She trained in London at East Grinstead before embarking on her plastic surgery training. She completed her training in microsurgery at Guys and St. Thomas Hospital. Marlene is a published author on the topic of breast reconstruction, facial analysis, and lower limb reconstruction. Marlene shares with us the history of when DIEP flaps were introduced in microsurgery. She outlines the reason it is often called the “gold standard” in breast reconstruction, and what area of the body microsurgeons use to reconstruct the breast for those affected by breast cancer. Who is a candidate for DIEP flap and what concerns do patients have about recovery for this surgery? She shares with us the importance of using ERAS protocol to enhance recovery. We then switch topics and discuss the origins of the London Breast Meeting. Marlene and I glimpse into the celebration of the tenth anniversary of the conference and what the focus will be. It all began ten years ago with an invitation from colleague and friend Jian Farhadi while she was completing her microsurgical fellowship. Jian wanted to begin a conference on breast cancer treatment, breast surgery, breast reconstruction, and aesthetic breast surgery. It has evolved into one of the premier breast meetings to attend and be part throughout the world. With that, I invite you to listen to the podcast as Marlene shares the goals and theme of the London Breast Meeting 2024. You can find Marlene See and her colleague Jian Farhadi on Social Media accounts here: Marlene See: Instagram: seemarlene LinkedIn: Marlene See Jian Farhadi: Instagram: plasticsurgeryfroup_by_farhadi LinkedIn: Jian Farhadi        

In this episode of the DiepCJourney podcast I speak to Nikki and Sean, a married couple who share the poignant story of going through Nikki's discovery of a genetic mutation and facing the shocking news of breast cancer. It is who we meet through our own breast cancer Journey that has a profound impact on a person's personal life. Nikki and Sean are two of those people in my life. We experience a range of emotions together throughout the podcast because we have known each other for some time. This story needs to be shared in as much as it was difficult at times for us all. Nikki and Sean give us an honest, raw, touching account of not only learning she had a genetic mutation putting her at high risk of getting breast cancer but also finding out after prophylactic DIEP flap breast reconstruction she found her own breast cancer. What is it like as a couple to hear the news, share it with two young sons, find the humor in life while facing breast cancer, and how they pulled each other through it all. They talk about surgery, chemotherapy, radiation, and recovery and survivorship. There are valuable resources we wish to share with you that we spoke about in the podcast. You can gain access to all of them in the following links. Outdoor Adventure for Young Adults Living with Cancer and MS Yoga With Leona: Overcoming Breast Cancer Through Yoga Harmony Hill Healing Retreat Northwest Hope and Healing: Providing Financial Assistance to breast and gynecologic cancer patients. Genetic Support Foundation

Mammograms are known to be the most common form of breast imaging to screen for breast cancer. This form of breast imaging is known to some to be uncomfortable and for some women culturally unacceptable. So, this DiepCJourney podcast interview sparked great interest in the work my guest is doing. Professor Simona Francese, Professor of Forensic and Bioanalytical Mass Spectrometry at Sheffield Hallam University is my guest. Her work and interest in forensic science lead her to a serendipitous discovery published in a paper she authored with others entitled, “Non-invasive screening of breast cancer from fingertip smears – a proof of concept study”. Professor Francese and I met at the London Breast Meeting this year where she opened the conference with her presentation on this topic. I was keen to follow up on an interview with her. This interview along with slides she shares on the study can be viewed on the DiepCFoundation channel. Research requires funding. As one who has had numerous mammograms, I am taking it upon myself to share information to reach out to Professor Francese for anyone interested in contacting her to bring financing to this project. It is a favor I am happy to do for her and to the breast cancer community I serve. Simona Francese Biomolecular Sciences Research Centre, Sheffield Hallam University Howard Street S1 1WB, Sheffield, UK Email: s.francese@shu.ac.uk Tel: 0044 114 2256165   You can find links to her social media accounts here: Instagram: forensic_geek LinkedIn: Simona Francese    

DIEP flap breast reconstruction most often requires surgical drains for post operative care. Patients often mention to me they are awkward, can become infected at the suture site where they are attached to the skin, and are cumbersome to hide under clothing after surgery when going out in public. My guest on this episode of the DiepCJourney podcast has been in communication with me over the past year in anticipation of his recently published paper, Are Surgical Drains Needed in DIEP Flap Surgery? The Drain-Free DIEP Flap Concept. Mr. Theo Nanidis, is a Consultant Plastic and Reconstructive surgeon with the NHS and private practice at The Royal Marsden. He graduated with distinctions from University College London Medical School in 2003 and completed his general surgical and higher plastic surgery training in London. Mr. Nanidis was awarded specialist fellowships at the Royal Marden and Queen Victoria Hospitals, where he spent two years specializing in microsurgery with a focus on breast reconstruction. He has a special interest in surgical innovation and was awarded The Life Sciences Entrepreneur of the Year Award from Cambridge University in 2013. His research interests include meta-analytical outcomes research, volumetric analysis of flaps and patient enhanced recovery pathways. He has published and presented his work nationally and internationally. We reference a paper by Ms. Anita Mohan, Modified aesthetic abdominoplasty approach in perforator free-flap breast reconstruction: Impact of drain free donor site on patient outcomes. This was the impetus for further work and the recently published paper by Mr. Nanidis. You can find his work on the following social media channels: LinkedIn: Theodore Nanidis Twitter: @drplas Instagram: drtheonanidis Facebook: Theo Nanidis Plastic Surgeon  

Dr. James Craigie from The Center for Natural Breast Reconstruction in Charleston, South Carolina, discusses the use of clips, mesh, and sutures used in breast reconstruction surgery on this episode of the DiepCJourney podcast. Many patients ask about these tools and devices. The information Dr. Craigies provides helps the listener understand their use and function in procedures like DIEP flap breast reconstruction. This podcast cast is a remake of the DiepCFoundation video. We want to present platforms to watch and listen for patients as they reserach options for surgery after mastectomy. Our aim is to provide this information so the listener can takes notes, pause, rewind and replay the episode to prepare questions in order to have a shared decision-making conversation at their surgical consult for breast reconstruction for those affected by breast cancer and facing mastectomy. You can reach out to their office on the account of their COO (chief operating officer): Gail Lanter on LinkedIn 

My guests on the DiepCJourney podcast are often made through connections in the breast cancer community. This is the case for Amy Robinson. She was introduced to me by another survivor who like me, benefits from the practice of meditation as part of her survivorship after surgery, treatment, and recovery. As a treat at the end of the podcast, I ask Amy to take us through a three-minute meditation. You won't want to miss it! My guest, Amy Robinson, created Radiant Healing Together in 2022 transforming the breast cancer experience with vital research, caring support, and warm community. Her 12+ weekly live events, curated experts, and exclusive 170+ on-demand recordings of events, meditations, and classes help you achieve your greatest wellness & vitality, wherever you are on the breast cancer healing journey. This includes: Warm supportive community with 12+ events/week Metabolic Approach to Cancer, Radical Remission Healer, Healthy Recipes & Cooking, RHT Expert Summits  Leading-Edge Experts in Medical + Emotional Healing and Spiritual Direction   Classes with Nutrition, Lymphedema, Pelvic Health & Alignment, Art Therapy, Meditation and Yoga Professionals 70+ breast cancer meditations from 5-60 min 100+ ON DEMAND events, interviews & classes You can find Amy and more about her work and resources here: Radiant Healing Together Private Facebook Group: Public Facebook Page for Amy Instagram for Radiant Healing Together

This DiepCJourney podcast will focus on breast imaging. The questions we will discuss are when to see a radiologist, types of imaging, and more specifics about each type. We will look at what the future looks like in medical imaging in breast cancer. I'm speaking to Dr. Randy Miles. Dr. Miles serves as the chief of breast imaging at Denver Health with oversite over the breast divisions clinical, research, and educational programs. He also serves as the associate director for research in the radiology department. He earned his medical degree from Mayo Clinic College of Medicine. Dr. Miles has achieved multiple awards throughout his career and served on medical missions in Haiti and the Dominican Republic. He completed his master's in public health degree from Harvard School of Public Health. He completed his diagnostic radiology residency training at the University of Illinois, Chicago where he served as chief resident. He went on to complete his breast imaging fellowship training at the University of Washington Medical Center, Seattle Cancer Care Alliance. Dr. Miles has been the recipient of numerous research grants and has published over fifty papers. He talks nationally on his work in artificial intelligence, health literacy, and breast cancer disparities. Join us as we share these topics that are of interest to those in the breast cancer community served at DiepCFoundation. Connect with Dr. Randy Miles on his social media accounts here: Twitter: Randy Miles, MD LinkedIn: Dr. Randy Miles  

The London Breast Meeting will be held from September 7-9, 2023, at the Royal College of Physicians. It is a special opportunity for me to interview and be interviewed by my guest today on this episode of the DiepCJourney podcast. My guests and I discuss opportunities we will be involved in at the London Breast Meeting from the perspective of industry leaders, a world class microsurgeon, and patient advocacy. My guests are Rob Pupelis, CEO of Spectros, a medical device company that makes advanced molecular sensing devices like the T-Stat 2.0 tissue monitoring system for microvascular breast reconstruction like DIEP flap. I also welcome Elizabeth van Thillo, Vice President of Operations for Spectros. Dr. Minas Chrysopoulo joins us in conversation to discuss his role as an invited speaker at the London Breast Meeting. Dr. C is the current President of PRMA in San Antonio, Texas. We engage in conversation about the Breast Advocate® app he created. It is the first shared decision-making app for breast cancer and breast surgery. Dr. C is the Founder of Toliman Health, a digital health company committed to improving patient experience, outcomes, and satisfaction via empowering shared decision-making mobile technology. I would like to share that this podcast interview was conducted in early July of 2023. We discussed a topic regarding insurance coverage for DIEP flap breast reconstruction that has been a great concern for many, especially those patients affected by breast cancer facing a mastectomy who are interested in tissue-based reconstruction. I am happy to announce at the publish date we can share the news that coverage for DIEP flap and other autologous tissue reconstruction will continue to be covered by insurance allowing full access to reconstructive options for women. We share the excitement of attending the London Brest Meeting and connecting with colleagues across the globe to learn from gamechangers in oncological breast care and breast surgery. Be sure to listen to our fun London favorites at the end of the interview! You can follow my guests and find out more on their LinkedIn accounts here: Rob Pupelis Elizabeth van Thillo Dr. Minas Chrysopoulo, MD, FACS       

My guests on this episode of the DiepCJourney podcast are three sisters, all of who have a BRCA 1 genetic mutation, and all of whom had DIEP flap breast reconstruction at the same surgical practice, PRMA, Plastic Reconstructive Microsurgical Associates, in San Antonio, Texas. This is also the surgical practice I had my DIEP flap performed by Dr. Minas Chrysopoulo in December of 2014. Elaine, the youngest of the three sisters, lead the way being the first to have her prophylactic DIEP flap with Dr. Peter Ledoux. After finding she tested positive for the BRCA 1 genetic mutation, she completed her surgery in late May of 2017. While she was in recovery, her sister, Eleanor, the oldest of the three, had her prophylactic DIEP flap two weeks later with Dr. Chet Nastala. I met Emily, the middle sister, while we both lived in Tucson, Arizona. Emily traveled to San Antonio in 2017 to help her sisters out during their recovery. After we sat down together in Arizona in 2018, it was in June of that year Emily decided to move forward with her DIEP flap with Dr. Ledoux. Her story is especially unique in that she planned a pregnancy after her DIEP flap. She shares the beautiful story of the birth of her young daughter after her DIEP flap. This is perhaps one of the most emotional, delightful podcasts I have recorded. We talked about so much we had in common, especially our ties to PRMA. All three sisters are advocates for those who carry a genetic mutation placing them at a high risk of getting breast cancer. They share their story and what others can do to mitigate their risk of getting breast cancer. Links on Facebook can be found here: Eleanor Ryder  Emily Koellner Link for LinkedIn Account: Elaine Murray 

Breast cancer is a scary word that no one wants to hear from their physician. When you're diagnosed with breast cancer your mind can often go to, “How long am I going to live?” But because treatments have improved over the years, survivorship in breast cancer is a word we are hearing more often now in breast cancer communities, online, and in the media. On this episode of the DiepCJourney podcast, we are shining a light on survivorship with our guest, Deepa R. Halaharvi, DO, who has “seen both sides as a breast cancer survivor and breast cancer surgeon.” She completed her residency in general surgery at Ohio Health Doctors' Hospital and went on to complete a fellowship in breast surgical oncology at OhioHealth Grant Medical Center in Columbus, Ohio. Dr. Halaharvi practices at the OhioHealth Physician Group. She shares her personal story, the procedures she performs for her patients including those with ptotic (droopy or sagging breasts) called the goldilocks mastectomy, her procedural practice in clinic for the newly diagnosed, and what she does in her personal life to achieve work-life balance. Links and social media accounts to find out more about Dr. Halaharvi The Breast Cancer Podcast Instagram Account LinkedIn Account Facebook Account

  When our bodies are physically changed because of breast cancer, it has the real potential of affecting sexual health. There are multiple layers to look at when a person presents with sexual dysfunction. In other words, the natural process of the act of sex has been disrupted due to treatment, surgery, the emotional impact of cancer, and other considerations. My guest on this episode of the DiepCJourney podcast is an expert in this field. I want to welcome Dr. Stacy Tessler Lindau, professor of obstetrics and gynecology at the University of Chicago Medicine. Her Clinical Interests include Cancer Survivorship, Female Sexual Dysfunction, Female sexual function, Gynecologic Cancers, Integrated Women's Health, and Medical Ethics. I am pleased about our common connections and would like to mention that I am conducting this podcast because of being asked to help in gathering information on the Bionic Breast Study from patients in the community I serve. We are going to take an in-depth look at that program with Dr. Lindau today as part of the sexual concerns in women with cancer. Dr. Lindau is also the Founding chair of the Scientific Network on female sexual health and cancer. She also created, Woman Lab, a platform where every woman – and everyone who loves and cares for women – can learn truths about sex. On the podcast “The Curbsiders Internal Medicine,” Dr. Lindau tackles fully the problem of sexual health not being discussed among many physicians, no matter what discipline they specialize in. You can find Dr. Lindau on LinkedIn here: Dr. Stacy (Tessler) Lindau 

Achieving symmetry and understanding fat grafting in breast reconstruction are topics patients frequently ask about. I reached out to an expert in the field. My guest on this episode of the DiepCJourney podcast is Dr. Tim Matatov of Southwest Breast and Aesthetics in Phoenix, Arizona. Dr. Matatov is a board-certified microsurgeon who performs procedures such as implant breast reconstruction, several autologous reconstruction procedures, autologous meaning using the patient's own tissue to reconstruct the breast, nipple reconstruction, and a variety of other breast reconstruction procedures.   He works with a team of two other surgeons, Dr. Joseph Zakhary and Dr. Matthew J. Mino. We discuss mastopexy, or breast lift, in the setting of breast reconstruction. Achieving symmetry in the contralateral breast for a unilateral DIEP flap is important to the patient. It serves a functional purpose as well when wearing wardrobe items like a bra. He points out the psychological benefits to the patient since this becomes a quality of life and self-image concern for women. Dr. Matatov outlines the various names and details of mastopexy procedures and why one might be chosen over the other for optimal patient outcomes. Dr. Matatov shares how important it is to have an open discussion with patients about managing reasonable expectations. Dr. Matatov continues the discussion with fat grafting. He points out that a lot of the techniques and percentages, and how it all works is for a majority of cases, theoretical. He states there is not any hard proof that one technique or device works better than the other. There are studies that are peer-reviewed but not randomized and controlled to a degree which backs up his statement on fat grafting methods. However, Dr. Matatov feels it is a very effective part of the breast reconstruction process. He points out again that managing patients' expectations is very important in this step of breast reconstruction. It often takes more than one fat grafting procedure. Techniques, patient outcomes, value of patient support groups, are discussed further in the podcast. Social Media accounts to find out more about Dr. Matatov and his practice: Instagram Account Facebook Account  

My guest today on the DiepCJourney podcast has a blog and website titled, No Half Measures, Living Out loud.  2017 was a pivotal year in the life of my guest, Abigail Johnston. Early that year, while dual nursing her twin boys she felt a lump in her left breast. The next few months involved multiple appointments with radiologists, oncologists, and surgeons. Abigail was diagnosed with metastatic breast cancer.  Abigail Johnston is a wife, mother, writer, educator, earned her JD after completing law school and is a patient advocate. She begins the interview by sharing her experience at the National AACR conference held in early 2023. She sat on a panel with the FDA speaking about the importance of overall survival as an important end point in clinical trials. With all the complexities on that topic, she felt the FDA worked hard to make sure her voice was heard. Attending conferences allows her to meet other patient advocates and for Abigail and me, this is always one of the highlights of traveling to these meetings. We met in person in December of 2022 at the San Antonio Breast Cancer Symposium. As she says, “Those in person hugs, nothing is better, honestly.” She talks about the idea of “finding a purpose after a serious trauma.” Abigail states that trauma changes you fundamentally as a human being. The question becomes, how do you carry that trauma? Advocacy is the way Abigail has found some purpose in “the derailment of her life.” It has become an overarching theme in her life. This was a podcast interview that felt comfortable, informative, and one I will go back and listen to myself often. You can reach out to Abigail and find more of her work in the following links: Blog: No Half Measures: Living Out Loud Bio: Abigail's Story Contact Information: Email Abigail Place to find Abigail's writing and work: Social Media and Elsewhere      

Democratization is a noun. The meaning of democratization as it pertains to microsurgery is the action of making training and education available through technology, in this case, microsurgery in breast reconstruction. The chosen field of microsurgery requires hours of training and practice. Observing colleagues perform this sophisticated and complex surgery increases their own skill set with the primary goal being improving patient outcomes in breast reconstruction. I invited back to the DiepCJourney podcast two internationally known microsurgeons. Dr. Joe Dusseldorp practices in Sydney, Australia and is a fellow of the Royal Australasian College of surgeons. He has a keen interest in microsurgery and did his training overseas to achieve this status. He is also trained to do robotic assisted surgery. Dr. Minas Chrysopoulo is the current president of PRMA in San Antonio, Texas, and founder of the Breast Advocate®, a free shared decision-making app for breast cancer surgery and breast reconstruction. He holds a board certification in plastic surgery. As he states, board certification matters in your relevant field. Dr. C underwent further training in microsurgery that included burns and hand which led him to microsurgical breast reconstruction. It is the core of his practice with his team member surgeons at PRMA. Dr. Joe invited Dr. C to join him live in the operating theater using the Proximie technology system to observe a robotic assisted DIEP flap breast reconstruction. When you hear the term “mate” from a London born microsurgeon, Dr. C, referring to Dr. Joe in Sydney, you know they have become colleagues in surgery as well as friends who have a passion for providing the best outcomes for breast cancer patients in breast reconstructive surgery. I invite you enjoy the conversation and explanation of how these two cross-continental surgeons seamlessly joined each other via the Proximie technology system in the operating theater discussing, learning, and sharing their combined skill in a robotic assisted DIEP flap breast reconstruction. Dr. Joe and Dr. C both say this is the way forward, democratization in surgery, allowing more surgeons to train in real time, avoiding the need to travel and take them away from their patients and time in clinic and the OR. Resources discussed in the Podcast. Proximie Healthcare Platform Dr. Joe's DiepCFoundation educational video on Robotic Assisted DIEP flap Dr. C's DiepCFoundation educational video on Reducing Abdominal Complications: DIEP Flap   Connect with Dr. Joe Dr. Joe on Instagram Dr. Joe on Twitter Dr. Joe on LinkedIn Connect with Dr. Chrysopoulo Dr. C. on Instagram Dr. C. on Twitter Dr. C. on LinkedIn

Megan-Claire Chase is a breast cancer survivor who deals with a lot of effects from treatment and being diagnosed with lobular breast cancer at a very young age. But she excitedly begins our conversation by saying her pain melted away at the San Antonio Breast Cancer Symposium when she was able to meet patient advocates in person for the first time. Social media connects many of us but the conference we both attended in early December of 2023 allowed us to sit down together to share intimate conversations, ask each other how we are doing, and share our advocacy work. I was fortunate to be one of those advocates to finally meet her in person at the meeting. Megan-Claire experienced strange symptoms for about two years that were left without a diagnosis. Her mother had ovarian cancer when she was pregnant with Megan-Claire. She states she felt this made her a miracle baby for her parents. Megan-Claire felt certain at some point in her lifetime she would get cancer because she has a strong history in her family. Because of this she was able to get a mammogram at age thirty-five and have it covered by insurance. Being hyper aware of her body due to family history of cancer, the signs she saw were concerning. She noticed tiny green bruising on her legs, weight gain, loss of hair on the left side of her head, and a “zit” on the outside of her left breast. She knew something was not right. Megan-Claire shares with us she would like the medical community to be more aware that black women and other women of color will present with different symptoms that her white counterparts. This leads us to a more in-depth conversation on health disparities, implicit biases in breast cancer care and what Megan-Claire accomplishes in her community and advocacy work to improve the communication between the patient and physician. Megan-Claire will be participating in a community event to connect patients and provide these resources June 15-21 of 2023. The event and other ways to join Megan-Claire on social media can be found here. National Black Family Cancer Awareness Week started by the FDA through the Oncology Center of Excellence. Megan-Claire's Linked Account: https://www.linkedin.com/in/megan-claire-chase/ Breast Cancer Program Director: Share Cancer Support