Podcasts about als research

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Best podcasts about als research

Latest podcast episodes about als research

Takacs McGinnis Elder Care Law Hour
Episode 256: ALS Research: Early Diagnosis, Treatments, and Latest Discoveries

Takacs McGinnis Elder Care Law Hour

Play Episode Listen Later Jan 29, 2025 21:46


Elder Care Coordinator Pati Bedwell speaks with Dr. Veronique Belzil, an Associate Professor of Neurology at Vanderbilt University Medical Center. Dr. Belzil also serves at the Director of the Vanderbilt ALS Research Center.

Nightside With Dan Rea
Nightside News Update 1/3/25

Nightside With Dan Rea

Play Episode Listen Later Jan 4, 2025 45:29 Transcription Available


We kicked off the program with four news stories and different guests on the stories we think you need to know about!Chad Finn – Boston Globe Sports Reporter with his Boston sports predictions for 2025.4th Annual Rally 4 Nally Polar Plunge to take place at Carson Beach on Saturday, January 4th - Honoring Cathy Nally who died of ALS is her son  Dan Nally, who is carrying on her legacy of advocacy for ALS Research & Pete Frates Foundation.Lean Into the Unknown and Unleash Your Inner Misfit - Secrets to ‘Failing Your Way to Success' with author James Sweeney.Patricia Bonis - Author of “Jeddah Bride”. U.S. Woman's Wild Tale of a whirlwind romance with the son of a wealthy Saudi family & how she found her children 14 years after billionaire dad's kidnap plot.Ask Alexa to play WBZ NewsRadio on #iHeartRadio and listen to NightSide with Dan Rea Weeknights From 8PM-12AM!

WBZ NewsRadio 1030 - News Audio
Bostonians Braved Frigid Waters In Annual Polar Plunge For ALS Research

WBZ NewsRadio 1030 - News Audio

Play Episode Listen Later Jan 4, 2025 1:00 Transcription Available


Hundreds of friends and family of Cathy Nally took part in the fourth annual 'Rally 4 Nally Polar Plunge' to raise awareness for ASL. For more, ask Alexa to play WBZ NewsRadio on #iHeartRadio.

Open Mics with Dr. Stites
10 Years After the ALS Ice Bucket Challenge,What is the State of ALS Research?

Open Mics with Dr. Stites

Play Episode Listen Later Nov 6, 2024 37:15


Ten years since the ALS Ice Bucket Challenge. We explore the real impacts of that viral trend. New research and novel drugs but still no cure. Meet one woman who is not giving up, but is giving back, in the face of a terminal diagnosis.

Endpoints
Biogen's Dr. Stephanie Fradette on the Current State of ALS Research

Endpoints

Play Episode Listen Later Oct 30, 2024 25:26


We need more – likely many more – effective treatments to end ALS. Progress in ALS research has been too slow for too long but, in 2024, we're witnessing significant advances and a new pace of progress. The past few years have see more treatments for ALS in clinical trials than ever before. Still, most drugs that reach trial fail, in any disease. However, the more experimental treatments that make it to trials – with good preclinical evidence to support them – the more likely there are to be successes. Recently, we have even seen approvals for new ALS treatments, such as tofersen, a genetic treatment developed by Biogen for SOD1-related ALS, sold under the brand name Qalsody. Dr. Stephanie Fradette was one of the people behind milestone. As the VP Head of Neuromuscular Development at Biogen, she oversees the company's research and development of treatments for ALS and related diseases. Today, on Endpoints, Dr. Fradette joins us to talk about the current state of ALS research ­- the biggest challenges facing researchers, the developments that give her hope for the future, and how the ALS research community could better serve people with the disease.Support the show: https://www.als.net/donate/See omnystudio.com/listener for privacy information.

Nightside With Dan Rea
Nightside News Update 10/11/24

Nightside With Dan Rea

Play Episode Listen Later Oct 12, 2024 39:58 Transcription Available


We kick off the program with four news stories and different guests on the stories we think you need to know about!Diane Bair – Boston Globe reporter/contributor brings us New York City's BagelFest - where a Cambridge bagel was named Best of the Fest.Ann Hadley - Chief Development Officer of The Angel Fund for ALS Research discusses the 21st annual 100 Innings of Baseball benefiting ALS Research.Kelly Bulkeley - Ph.D., a psychologist of religion specializing in dream research - author and founder of the Sleep and Dream Database asks Do you dream in color or black and white? Here's what the science says.Lt. Randy Sutton (Retired Las Vegas PD) – Crime expert & founder of The Wounded Blue has a Scam Alert: AI ‘deepfakes' of Hurricane Helene victims circulate on social media, ‘hurt real people'.Ask Alexa to play WBZ NewsRadio on #iHeartRadio!

The 21st Show
10 years after ice bucket challenge: Where is ALS research?

The 21st Show

Play Episode Listen Later Sep 5, 2024


The Andrew Carter Podcast
10 years after the Ice Bucket Challenge, what is the latest on ALS research?

The Andrew Carter Podcast

Play Episode Listen Later Aug 7, 2024 6:20


Claudine Cook is executive director of ALS-Québec. She spoke to Andrew Carter about 10 years since the ALS Ice Bucket Challenge went viral… what did the campaign mean for ALS awareness, funding and researching? 

Discover Daily by Perplexity
Eric Schmidt's AI Drones for Ukraine, SpaceX's Starship Milestone, Humane's Fire Alert, ALS Research Breakthrough, and D-Day Stories

Discover Daily by Perplexity

Play Episode Listen Later Jun 7, 2024 5:03 Transcription Available


In this episode of Discover Daily, we explore a range of captivating stories from the worlds of technology, science, and history. We begin with the secretive military drone startup, White Stork, founded by former Google CEO Eric Schmidt. These AI-powered kamikaze drones are designed to support Ukraine in its ongoing conflict with Russia. Next, we celebrate SpaceX's successful fourth test flight of its Starship mega-rocket, marking a significant milestone in the company's space exploration efforts.Moving on, we discuss an urgent safety warning issued by Humane, the company behind the AI Pin wearable device. Due to a potential fire risk associated with certain battery cells in the device's charging case, users are advised to stop using and charging the case until further notice. We also highlight a groundbreaking discovery by researchers at Western University, who have identified a protein interaction that could lead to a potential treatment for amyotrophic lateral sclerosis (ALS).Finally, we look into some lesser-known facts about D-Day, the Allied invasion of Normandy on June 6, 1944. From the original invasion date being postponed due to weather conditions to the use of dummy parachutists and inflatable tanks as part of a deception campaign, these fascinating details shed light on the challenges and ingenuity involved in this pivotal moment in history.From Perplexity's Discover Feed: Eric Schmidt's AI Combat Droneshttps://www.perplexity.ai/page/Eric-Schmidts-AI-boKJzWQcRFmCLk5XjgKJEQSpaceX Successfully Lands Starshiphttps://www.perplexity.ai/page/SpaceX-Successfully-Lands-PCd62nm2Sr.BZGUHFmHP2wHumane Charging Case Hazardhttps://www.perplexity.ai/page/Humane-Charging-Case-1KQ5x0BNRwmUK5XReMJY5wThe D-Day Lesser-Known Factshttps://www.perplexity.ai/page/The-DDay-LesserKnown-7qZ.lLM9Q8SrlEZFZhSx8wPerplexity is the fastest and most powerful way to search the web. Perplexity crawls the web and curates the most relevant and up-to-date sources (from academic papers to Reddit threads) to create the perfect response to any question or topic you're interested in. Take the world's knowledge with you anywhere. Available on iOS and Android Join our growing Discord community for the latest updates and exclusive content. Follow us on: Instagram Threads X (Twitter) YouTube Linkedin

Ever Forward Radio with Chase Chewning
EFR 809: The Impossible Dream - The Mindset and Daily Habits to Beat the Terminal Illness ALS with Aaron Lazar

Ever Forward Radio with Chase Chewning

Play Episode Listen Later Jun 3, 2024 78:10


This episode is brought to you by Caldera Lab, Timeline Nutrition, and LMNT. What if living beyond your limitations was more than just a mindset—it was your reality? Join me for an emotional conversation with Aaron Lazar, the accomplished actor and Broadway singer who is defying the odds in his battle with ALS. Aaron's story is not just about resilience; it's about a profound transformation from fear and unhappiness to empowerment and self-healing. Discover how shifting self-perceptions and embracing a life beyond limitations can lead to a mindset of being healed, whole, strong, and powerful.  Follow Aaron @aaronscottlazar Follow Chase @chase_chewning ----- In this episode we discuss... (05:41) Aaron's ALS Story (17:11) Aaron's Powerful Conscious Awakening (26:59) Finding Peace in the Midst of a Terminal Illness (34:24) Navigating Life's Uncertainties (39:31) Neuroscience and ALS Research (42:59) Heart Opening and Energy Connection (47:47) Cultivating Daily Self-Love and Gratitude Practices (52:18) Power of Personal Storytelling (01:15:07) Aaron's Career Future ----- Episode resources: Save 20% with code EVERFORWARD on my favorite men's skincare products at https://www.CalderaLab.com Save 10% on your first purchase of MitoPure mitochondrial revitalizer with code EVERFORWARD at https://www.TimelineNutriton.com/everforward  Get a FREE 8-count electrolyte sample pack with any purchase at https://www.DrinkLMNT.com/everforward  Watch and subscribe on YouTube Learn more at AaronLazar.com

Mornings with Sue & Andy
CPS Response to Campus Protests, Promising ALS Research, Dining Out vs. Inflation

Mornings with Sue & Andy

Play Episode Listen Later May 15, 2024 23:37


Calgary Police were front and center last week when called in to remove the encampment of pro-Palestine protesters from the University of Calgary, but was the Police response warranted and how do we balance safety with the right to protest? We discuss with Calgary Police Chief Mark Neufeld.   Approximately one-thousand Canadians are diagnosed with the ALS or Lou Gehrig's disease every year, and most die within two to five years of diagnosis. But new promising research could lead to a reduction in symptoms of ALS. We get details on the study from Doctor Chantelle Sephton, Associate professor, Faculty of Medicine from the University of Laval.   Inflation is changing the way we eat, particularly when it comes to dining out at restaurants. What can be done to combat rising menu prices and entice Calgarians to spend money at local restaurants? We tackle the topic with Brittain Brown, President of President of ‘Givex'.

The Vassy Kapelos Show
Smoke and air quality warnings across the country

The Vassy Kapelos Show

Play Episode Listen Later May 14, 2024 78:09


Kelsey McEwen, Chief Meteorologist on CTV Your Morning joins Vassy Kapelos to give the latest on the wildfires that are burning in B.C and Alberta, highlighting some of the air quality warnings that have been issued across the country.  On todays show: Listen to Vassy's full conversation with Kamal Khera, Minister of Diversity, Inclusion and Persons with Disabilities of Canada on the timeline for Canadian Disability Benefit boost. Dr. Michael Strong,  Arthur J. Hudson Chair in ALS Research at Western's Schulich School of Medicine & Dentistry on Western researchers' breakthrough that is paving the way for an ALS cure. The Daily Debrief Panel with Shachi Kurl, Saeed Selvam and Shakir Chambers. Mike Greenley, CEO of space company MDA Space joins Vassy Kapelos to discuss a push to integrate more on areas of defense, including space.

Eric in the Morning
Doug McConnell of Chicago River Swim

Eric in the Morning

Play Episode Listen Later Apr 5, 2024 9:16


Ready to swim in the Chicago River? Chris of The Morning Mix chats with Doug McConnell founder of Chicago River Swim about the event, fundraising for ALS Research, and more!For more information, visit: www.chicagoriverswim.org.Listen to The Morning Mix weekdays from 5:30am - 10:00am on 101.9fm The Mix or with the free Mix App available in the Apple App Store and Google Play. Learn more about your ad choices. Visit podcastchoices.com/adchoicesSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Eric in the Morning
Doug McConnell of Chicago River Swim

Eric in the Morning

Play Episode Listen Later Apr 5, 2024 9:16


Ready to swim in the Chicago River? Chris of The Morning Mix chats with Doug McConnell founder of Chicago River Swim about the event, fundraising for ALS Research, and more! For more information, visit: www.chicagoriverswim.org. Listen to The Morning Mix weekdays from 5:30am - 10:00am on 101.9fm The Mix or with the free Mix App available in the Apple App Store and Google Play. Learn more about your ad choices. Visit megaphone.fm/adchoices

Strange New Pod
Treksperts Quiz - Your DISCO Needs You

Strange New Pod

Play Episode Listen Later Apr 2, 2024 56:13


A special Star Trek Discovery Quiz event! Join host Emcee as Julian from Strange New Pod, Treksperts' own Davey, and The Duras Sisters' Ashlyn go head-to-head! They will also be raising money for the ALS Therapy Development Institute in honor of Kenneth Mitchell!Follow Treksperts Quiz: https://trekspertsquiz.com/Follow the Duras Sisters: https://podcasts.apple.com/us/podcast/the-duras-sisters-podcast/id1532449957Support the show

The Genetics Podcast
EP 121: Breakthroughs and insights in ALS research with Dr. Michael Benatar

The Genetics Podcast

Play Episode Listen Later Feb 8, 2024 44:10


Welcome to this episode of The Genetics Podcast as we host Dr. Michael Benatar, a preeminent figure in the fight against Amyotrophic Lateral Sclerosis (ALS). Michael is a Professor of Neurology, the Chief of the Neuromuscular Division, and the Executive Director of the ALS Center at the University of Miami's Miller School of Medicine. Tune in as he and Patrick discuss research and treatment for presymptomatic gene carriers and other people at risk for ALS, as well as the future of ALS research.

PBS NewsHour - Segments
Former NYC deputy mayor raises millions for ALS research while facing his own mortality

PBS NewsHour - Segments

Play Episode Listen Later Nov 1, 2023 9:48


Some 30,000 Americans have been diagnosed with ALS, the rare neurodegenerative condition also known as Lou Gehrig's Disease. As researchers work for a cure, one patient is raising millions for the cause while he reckons with his own mortality. Judy Woodruff has the story for our series, Disability Reframed. PBS NewsHour is supported by - https://www.pbs.org/newshour/about/funders

The Patients Speak
Dr. Fred Grossman, Coya Therapeutics on ALS research

The Patients Speak

Play Episode Listen Later Oct 25, 2023 27:17 Transcription Available


In this podcast interview with Dr. Fred Grossman, President and Chief Medical Officer of Coya, the following key points were discussed:- The podcast, "The Patients Speak," aims to bridge the gap between healthcare science and the patient perspective.- Dr. Grossman highlighted the significant unmet needs in conditions like ALS and Alzheimer's disease, emphasizing the personal impact on patients and their families.- ALS (Lou Gehrig's disease) is a rapidly progressive neurodegenerative disease that affects muscle function, speech, and respiration, with a high fatality rate.- Alzheimer's disease is also a devastating condition, and patients and their families are eagerly seeking treatments.- The discussion touched on the importance of considering patients' perspectives on daily activities, which are greatly affected by these conditions.- Dr. Grossman emphasized the need for objective measures in clinical trials while acknowledging the importance of subjective input from patients and their families.- Patients' altruism and desire to contribute to research were highlighted as essential drivers in clinical trials.- Dr. Grossman discussed Coya's focus on regulatory T cells (Tregs) as a key cellular target in treating ALS due to their role in regulating inflammation.- Coya's treatment, Coya 302, aims to increase the number and function of Tregs to stabilize the immune system and halt ALS progression.- The potential impact of Coya 302 was discussed, with the aim of prolonging survival and improving patients' quality of life.- Dr. Grossman mentioned that Coya is planning a large-scale study for Koya 302 with a potential start in six months.- Collaboration with patient advocacy groups and the Healy Platform Trial was highlighted as a way to involve patients in research and speed up progress.- The importance of clear and honest communication between patients and healthcare providers was emphasized, with patients having the right to know what to expect in their condition.Fred's Website BSB Media

Mornings with Simi
Successful fundraising campaign for ALS research

Mornings with Simi

Play Episode Listen Later Oct 12, 2023 9:17


British Columbia, UBC, and the ALS Society of BC have teamed up and successfully raised over $5.3 million to establish an endowed trust for an ALS Research Professorship at UBC as part of PROJECT HOPE. Guest: Dr. Erik Pioro, Professor of Neurology at the UBC Department of Medicine Lead of the ALS Society of British Columbia's PROJECT HOPE Learn more about your ad choices. Visit megaphone.fm/adchoices

The Dr. Raj Podcast
Online Health Support with Brian Loew

The Dr. Raj Podcast

Play Episode Listen Later Jul 19, 2023 34:56


Today's Episode Dr. Raj speaks with Brian Loew about his patient engagement platform, Inspire. They discuss the origins and inspiration behind Inspire, exploring how it fosters a sense of community among its members, as well as the impact it aims to make in the years to come. Today's Guest  Brian Loew created Inspire in 2005 with the goal of accelerating medical progress by engaging patients and caregivers in safe, trusted online communities. For the past 17 years, he has grown the company to be the leading digital space for health, with more than 10 million visitors annually who join Inspire to discuss more than 3,000 health conditions. Brian has built a network of dozens of Non-profit partners including the American Lung Association, Mental Health America, and the Ovarian Cancer Research Alliance - who rely on Inspire for safe, moderated spaces where their members can receive trusted information and support.  Brian is a frequent speaker and writer on the topics of patient-centricity, the role of data in healthcare, health-focused social networks and digital medicine. He sits on the boards of the Robert Packard Center for ALS Research at Johns Hopkins, and New Jersey Goals of Care, and was a “Red Jacket” recipient from PharmaVOICE magazine for his contributions to the industry. Brian is a graduate of George Washington University. Check out Inspire here  About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a weekly medical segment on ABC news Los Angeles. Want more Dr. Raj? Check out the Beyond the Pearls lecture series! The Ultimate High Yield Bundle: The complete review of high-yield clinical medicine topics necessary for graduate medical education board exams including NBME, USMLE Steps 1/2/3, ITE and ABIM Boards. You can also listen to the Beyond the Pearls podcast. Check out our other shows: Physiology by Physeo Step 1 Success Stories The InsideTheBoards Study Smarter Podcast The InsideTheBoards Podcast Produced by Ars Longa Media To learn more about us and this podcast, visit arslonga.media. You can leave feedback or suggestions at arslonga.media/contact or by emailing info@arslonga.media. Produced by: Christopher Breitigan and Erin McCue. Executive Producer: Patrick C. Beeman, MD The information presented in this podcast is intended for educational purposes only and should not be construed as professional or medical advice. Learn more about your ad choices. Visit megaphone.fm/adchoices

Owl Have You Know
His Passion for ALS Research Starts at Home feat. Daniel Barvin '18

Owl Have You Know

Play Episode Listen Later Jul 5, 2023 30:27


During this year's alumni reunion Partio, we caught up with some alums right on campus. One of those alumni was Daniel Barvin ‘18.Daniel has held many different roles, in both financial advising and oil and gas sectors, and eventually earned an MBA from Rice Business in 2018. But in December of that same year that he tested positive for the C9orf72 gene expansion, which means may develop ALS later in life. Daniel's father, aunt, and uncle all have ALS. In 2020, he began volunteering at I AM ALS, and also joined Coya Therapeutics, a clinical-stage cell therapy platform company developing first-in-class therapeutics for ALS and other neurodegenerative diseases, where he is currently VP of operations and patient advocacy.In this episode recorded in the Rice Alliance space in McNair Hall, Daniel chats with host Maya Pomroy '22 about his journey, his passion for ALS research, and building community and support online with others affected by this disease.Owl Have You Know is a production of Rice Business and is produced by University FM.Episode Quotes:Changing the future of what it means to have ALS through Coya27:20 - We are in this age where we all know someone who's dealt with a neurodegenerative disease… [27:32] And Coya is looking to change what that experience is, change what it means to be diagnosed with these diseases, and show that through Houston's effort, through Rice's effort, through all of our efforts, we can change the future of what it means to have this disease and have it not be a death sentence.How I AM ALS helped launch the movement18:01 - I AM ALS has the beauty of being patient-led, letting anyone who comes say, "We'll let you start a team. We'll provide resources in terms of team management." And that was just the perfect place for us to start this ferocious movement.Empowering ALS patients with his story11:34 - The silver lining was after we came back from vacation, I was asked to do a talk for a high school, helping explain my story after an ALS documentary was shown. And I went and spoke at Carnegie Vanguard High School in front of the entire student body—800 students—and told them the story of my life. And the connection was palpable. And I said, "This is it. This is what I need to be doing."On being intentional about relationships16:33 - What I said when I was doing the advocacy part, I said I'm going to make less ALS patients. I'm going to make better ALS patients because I think that if I eventually get this disease, The fact that I'm able to plan, prepare, connect, comprehend, you know, this entire life of advocacy, and then I eventually get it, my mindset will most likely be far different than someone who just has to live with it.Show Links:  Coya Therapeutics End The Legacy I AM ALS Transcript Guest Profile:LinkedIn

Endpoints
The ALS Research Collaborative: How Your Participation can Accelerate ALS Research

Endpoints

Play Episode Listen Later Jun 29, 2023 24:53


In March 2023, ALS TDI announced the launch of the ALS Research Collaborative (ARC). ARC's goal is to learn more about the underlying biology of ALS to help accelerate treatments. The study is powered by the participation of people with ALS, who generously share data about their disease, their genetics, and their progression. This data then informs ALS TDI's research to find treatments for ALS. It is also shared with the broader ALS research community through the ARC Data Commons, an online portal allowing researchers to access years of data dating back to when the program was founded as the Precision Medicine Program, in 2014. This program is powered by participants – people with ALS all over the world who have chosen to share their data with ALS TDI in order to help accelerate research. ALS TDI works hard to make sure that participation is as easy as possible for these volunteers – nearly every aspect of the program can be completed from participants' homes. Today, on Endpoints, we're joined by Alan Premasiri, ALS TDI's Manager of Clinical Operations, to talk about what it's like to participate in ARC, how ALS TDI works to support our participants, and how their invaluable contributions help move our science forward. To learn more about ARC and sign up to join the program, visit ALS.net/ARCSupport the show: https://www.als.net/donate/See omnystudio.com/listener for privacy information.

Chachi Loves Everybody
Ep. 42 Mark Wallengren

Chachi Loves Everybody

Play Episode Listen Later May 25, 2023 93:47


EPISODE SUMMARY: Mark Wallengren is a 35 year radio personality and former host of the Mark and Kim show on KOST, the first equally billed male and female morning show in the country. Mark and Kim have a star on the Hollywood Walk of Fame. Wallengren shares how he got his start in radio and tons of exciting stories from his decades on air as Mark and Chachi sit down at for a chat! On this episode of Chachi Loves Everybody, Chachi talks to Mark Wallengren about:Growing up in a Mormon pioneer family full of artists and innovatorsGetting his start in Preston, Idaho and working his way to larger marketsShutting the Union Pacific Train with his reenacctment of War of the WorldsDoing voiceover work and creating a proffessional press kit that got him noticed by Jhani KayeLanding a job at KOST and eventually replacing MG Kelly in the morningsMeeting Kim Amidon and quickly dominating ratings with the Mark and Kim show His connections with Disney and the thrill of the annual KOST Disneyland PartyGetting a star on the Hollywood Walk of FameThe tragic loss of his brother Ernie to ALSAnd more!ABOUT THIS EPISODE'S GUEST:Mark Wallengren is a 35 year radio personality. He got his start in radio at KACH Preston, Idaho then worked his way to LA and was hired along with Kim Amidon at legendary Los Angeles radio station KOST 103.5FM in Feb of 1985. They won most of radios top personality awards and on the 20th anniversary of the Mark & Kim Show received a star on the Hollywood Walk of Fame in front of Disney's El Capitan Theater in 2006. To donate to the E. F. Wallengren Fund for ALS Research in honor of Mark's brother, Ernie, who passed away from ALS, click HERE.ABOUT THE PODCAST: Chachi Loves Everybody is brought to you by Benztown and hosted by the President of Benztown, Dave “Chachi” Denes. Get a behind-the-scenes look at the myths and legends of the radio industry.PEOPLE MENTIONED: Kim Amidon, Gary Owens, Uncle Earl Trout, Don Burns, Larry McKay, Orson Welles, Kip Guth, Jim Ladd, Frasier Smith, Jhani Kaye, Machine Gun Kelly, Mark Allen, Mike Sakellarides, Lowman and Barkley, Robert W Morgan, Charlie Tuna, Rick Dees, David Paymer, Grant Tinker, Earl Hamner, Rugburn Liz Fulton, Scott Shanon, Big Boy, Mark and Brian, Kevin and Bean, Real Don Steele, Roy Disney, Darren Silva, Roy Laughlin, John Peake, Michael Levine, Dick Cook, Mike Eisner, Greg Ashlock, Ellen K, Andrew Jeffries, Rodrigo HernandezABOUT BENZTOWN: Benztown is a leading international audio imaging, production library, voiceover, programming, podcasting, and jingle production company with over 3,000 affiliations on six different continents. Benztown provides audio brands and radio stations of all formats with end-to-end imaging and production, making high-quality sound and world-class audio branding a reality for radio stations of all market sizes and budgets. Benztown was named to the prestigious Inc. 5000 by Inc. magazine for five consecutive years as one of America's Fastest-Growing Privately Held Companies. With studios in Los Angeles, New York, London and Stuttgart, Benztown offers the highest quality audio imaging work parts for 23 libraries across 14 music and spoken word formats including AC, Hot AC, CHR, Country, Hip Hop and R&B, Rhythmic, Classic Hits, Rock, News/Talk, Sports, and JACK. Benztown provides custom VO and imaging across all formats, including commercial VO and copywriting in partnership with Yamanair Creative. Benztown Radio Networks produces, markets, and distributes high-quality programming and services to radio stations around the world, including: The Rick Dees Weekly Top 40 Countdown, The Daily Dees Show, The Todd-N-Tyler Radio Empire, Hot Mix, Sunday Night Slow Jams with R Dub!, Flashback, Top 10 Now, AudioLogger, Audio Architecture, Radio Merch Shop, The Rooster Show Prep, AmeriCountry, and Benztown Swag Bank. Benztown + McVay Media Podcast Networks produces and markets premium podcasts including: The Making of: A National Geographic Podcast, Run It Again, Hot Chicken and Cage-Free Conversation with Byron Kennedy, and Edelman Financial Engines' Everyday Wealth.Web: benztown.comFacebook: facebook.com/benztownradioTwitter: @benztownradioLinkedIn: linkedin.com/company/benztownInstagram: instagram.com/benztownradio

Endpoints
Rinaldo and Sara Dorman: What Keeps Us Coming Back to the Tri-State Trek

Endpoints

Play Episode Listen Later May 15, 2023 16:02


For more than 20 years, riders have been coming to the Tri-State Trek for an unforgettable weekend of riding bikes, seeing friends, and supporting ALS Research. The Trek is ALS TDI's signature fundraiser, and it has raised more than $10 million dollars to support our research to end ALS. It has also become something of a family affair, with riders who have been showing up for years, or even decades. Rinaldo and Sara Dorman have been an essential part of the Trek for 11 years. Rinaldo is the captain of Team America, one of the Trek's biggest and most dedicated teams. His wife Sara is a longtime volunteer who serves as the leader of the lunch crew – a job that requires feeding hundreds of hungry, sweaty cyclists every day. Rinaldo and Sara joined us to discuss how they got involved with the Trek, why they keep coming back year after year, and why they're especially excited for this year's ride on June 24-25th.Support the show: https://www.als.net/donate/See omnystudio.com/listener for privacy information.

Countdown with Keith Olbermann
DID TUCKER CARLSON AND KAITLAN COLLINS END THEIR CAREERS - 5.3.23

Countdown with Keith Olbermann

Play Episode Listen Later May 3, 2023 37:32


EPISODE 192: COUNTDOWN WITH KEITH OLBERMANN A-Block (1:43) SPECIAL COMMENT: "A group of Trump guys surrounded an Antifa kid and started pounding the living shit out of him," Tucker Carlson texted to his producer on January 6, 2021. "It was three against one, at least. Jumping a guy like that is dishonorable obviously. It's not how white men fight."  THAT is the thing Fox found, at the last moment, just as its trial with Dominion was about to begin, that it could not afford to let out publicly; not, at least, while Tucker Carlson was still its employee. I raised the likelihood that there was something just like this, something even worse than everything that had already come out. Got that one right. That's not only why Murdoch settled - it's a major reason that Murdoch fired Carlson. It also suggests Fox is the source of the text (Exhibit 276 to be precise) because it serves a purpose for Murdoch now. It dirties up his EX-employee on his way out and makes him a huge risk for anybody else to hire. Unfortunately it also segues into CNN's disastrous decision to double-down on its live Town Hall next week with Trump. Not only was its moderator, Kaitlan Collins, still working FOR Tucker Carlson at The Daily Caller seven years ago, but a cache of her articles there shows grotesque indifference to human suffering to say nothing of Islamophobia. Her "ICE BUCKET CHALLENGE HIPSTERS: THESE GUANTANAMO DETAINEES DID IT FIRST" not only says Khalid Sheik Mohammed "took the challenge a record 183 times" but mocks the 'challenge' itself - which was to raise money for ALS Research and Treatment. She also mocked Syrian refugees in another article, and authored a pair of homophobic tweets in college. Yet it is Kaitlan Collins that CNN's political director thinks can stand up to Trump lying in real time. She can "prod, ask questions, follow up, and try to get as revealing answers as possible." It is this David Chalian quoted in a Vanity Fair piece explaining "we obviously can't control what Trump says - that's up to him" and how Trump's sedition and crimes "does not make our approach any different" to him. CNN is standing on a precipice. If it does not cancel the Town Hall, fire Licht and Chalian, and fire or demote Collins, both its remaining journalistic credibility and any possible re-sale value it still has, will be erased. Because its last line of defense against Trump was getting a pay check as recently as seven years ago from Tucker "It's not how white men fight" Carlson to mock ALS, torture, and refugees. B-Block (18:30) POSTSCRIPTS TO THE NEWS: When Kevin McCarthy goes to the White House Tuesday to dictate terms on the debt ceiling, Biden may have a surprise for him: defaulting on US debt may be literally unconstitutional. And Chuck Schumer supposedly talked to Dianne Feinstein on Monday, except he didn't actually TELL anybody that. Politico merely read it of a photograph of the talking points he was carrying in his hand! (22:28) THE WORST PERSONS IN THE WORLD: A woman who slammed her car into BLM protestors gets a deal for FIVE HOURS OF COMMUNITY SERVICE. Texas wants its Republican Secretary of State to be able to overturn Democratic election victories in Houston just...cuz. And Disney's unexpected witness against Ron DeSantis... Ron DeSantis! C-Block (28:41) EVERY DOG HAS ITS DAY: Joe, not only hit by a car, but needing two surgeries and a Rescue desperate to pay for them (30:00) THINGS I PROMISED NOT TO TELL: I was reminded on a dog walk why one of the best pieces of advice I ever got came from a man I worked with for only five months: the late Boston star newscaster Chet Curtis. Hear the harrowing tale of the day he walked into "his" restaurant ready to be recognized only to find nobody there knew who the hell he was. I ain't modest much, but when I am, it's because of Chet. See omnystudio.com/listener for privacy information.

Connecting ALS
The 2023 Sheila Essey Award Winner…

Connecting ALS

Play Episode Listen Later Apr 27, 2023 22:26


This week Jeremy talks to Dr. Virginia Lee, a pioneering biochemist and neuroscientist who was awarded the 2023 Sheila Essey Award. Learn more about the Sheila Essey Award for ALS Research at https://www.als.org/research/research-we-fund/fellowships/sheila-essey-award-als-research For more on the Essey family's legacy, go to https://www.als.org/blog/memoriam-remembering-dick-essey Read the latest on the FDA's decision to approve tofersen at https://www.als.org/blog/tofersen-approved-sod1-alsThis episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Tuesday People
Episode 162 - Augie's Quest: A Tribute to the CEO of ALS Research, Augie Nieto

Tuesday People

Play Episode Listen Later Feb 28, 2023 26:24


He couldn't walk, but he moved mountains. He couldn't speak, but he said so much. He couldn't write, but he left behind countless messages, and his last one, which appeared a few days ago, showing up in hundreds of email boxes, contained the simple aching phrase: Keep me in your heart. On today's episode of the Tuesday People podcast, host Mitch Albom pays tribute to his friend and founder of Augie's Quest, Augie Nieto. In 2005, the successful fitness industry mogul behind Lifecycle and Life Fitness was diagnosed with ALS. Since then, his mission in life has been clear: To find a cure for ALS. For 18 years, Augie fought that battle with a vengeance, and raised hundreds of millions of dollars toward research and development. Though his body has stopped breathing, Augie's quest and fight lives on. To find out more about Augie's Quest and how you can help continue Augie Nieto's legacy, visit AugiesQuest.org. Learn more about your ad choices. Visit podcastchoices.com/adchoices

CReATe Connect Podcast
CReATe Author Series: Ep. 7 - Drs. Jim Caress and Michael Benatar on Electronic Health Records and ALS research

CReATe Connect Podcast

Play Episode Listen Later Jan 5, 2023 36:49


Dr. Jim Caress is a Professor of Neurology at Wake Forest University and Dr. Michael Benatar is a Professor of Neurology and Chief of the Neuromuscular Division and Executive Director of the ALS Center at the University of Miami. They will be discussing their recent publication titled “Harnessing the power of the electronic health record for ALS research and quality improvement: CReATe CAPTURE-ALS and the ALS Toolkit”.

Open||Source||Data
Healthcare Infrastructure, ALS Research and Reliable Data with Indu Navar

Open||Source||Data

Play Episode Listen Later Nov 9, 2022 46:00


This episode features an interview with Indu Navar, CEO and Founder of EverythingALS, a patient-driven non-profit, bringing technological innovations and data science to support efforts from care to cure, for people with ALS. Indu's impressive career includes being an original member of the WebMD engineering team, where she was instrumental in using emerging technologies to achieve application scalability and performance.In this episode, Sam sits down with Indu to discuss healthcare infrastructure applications, her strategies for providing reliable patient data, and the future of ALS research.-------------------“We said, ‘Okay, we're going to make this a citizen-driven research.' That means patients are going to come and enroll because it's their project and it's patient-driven. So, it's a patient-driven, open innovation. So, once you do open patient-driven, open innovation, now we are the custodians of the data. Patients own the data, so all the data is shared with the patient. That was not done before in any of the research. And so, we give all the data back to the patients. And of course, we give them metrics as well. What was the rate of their speed of their speech? And if they don't want to see it, it's fine, at least they have it. And that data, we are the custodians and as custodians we share the data. So, once we did this model, we got almost close to one thousand people enrolled, consented, within 16 months. As supposed to about 25 people in one year or 50 people in one to two years.” – Indu Navar-------------------Episode Timestamps:(01:19): What's changed for Indu in the last tear(05:46): What data infrastructure was like 25 years ago to solve for health outcomes(13:00): Indu's personal experience with healthcare data(16:47): What Indu is looking forward to in ALS research(20:43): How regulatory establishments have shifted in healthcare(30:31): Where Indu wants to see EverythingALS go in the next year(36:28): One question Indu wishes to be asked(38:28): Indu's advice for people inspired by EverythingALS-------------------Links:LinkedIn - Connect with InduTwitter - Follow InduTwitter - Follow EverythingALSVisit EverythingALS

I'm Dying to Tell You
Behind the Lab Door: ALS TDI's Passion & Hope to End ALS

I'm Dying to Tell You

Play Episode Listen Later Oct 25, 2022 69:20


Here I am on location in Boston to bring you a behind the scenes look and my  weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS.  I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research.  I wrapped up the weekend by attending their White Coat Affair gala which is a powerful evening that brings together and honors those living with ALS and remembers those whom we've lost.I catch up with 5 inspirational guests as we chat about the love, passion and hope behind the lab doors of this ALS research lab.  My conversations start directly in the lab as I talk to three scientists, Valerie Tassinari, Associate Scientist III, Anna, Gill, Associate Scientist III, Program Manager and Kyle Denton, Ph.D., Director, Cell Biology to find out what it means to work every day to discover treatments for those living with ALS.Then I talk to Kevin and Tessa Geraghty, who are living with ALS and also attending the ALS TDI weekend events and ask them what it means to visit the lab and meet others fighting the same terminal illness.Finally I chat with Carol Hamilton, Vice President of Development about unique ways to support their ALS research.  I loved witnessing the special bond between those who work in the lab and those who they are trying to save.  From all of us living with ALS, thank you for listening and sharing with a friend.  Hugs, Lorri

Connecting ALS
Advancing ALS Research…

Connecting ALS

Play Episode Listen Later Sep 29, 2022 18:46


This week, Jeremy welcomes Dr. Devesh Pant to the show to talk about new developments in ALS research. Learn more about the Milton Safenowitz Postdoctoral Fellowship Program at https://www.als.org/research/research-we-fund/fellowships/milton-safenowitz-postdoc-fellowship-programThis episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Endpoints
Dr. Silvia Pozzi on the State of Antibody Therapies for ALS

Endpoints

Play Episode Listen Later Sep 6, 2022 15:43


Antibodies are an essential part of our bodies' defenses against diseases. They are specialized proteins that attack and kill foreign invaders like infectious bacteria and viruses. Antibodies are normally naturally produced by our immune system in response to an infection. However, in recent years, scientists have learned to produce antibodies in a lab to treat a variety of diseases.  Several Antibody treatments have been investigated in ALS, including tegoprubart, which was invented by ALS TDI and recently successfully completed a phase 2a clinical trial. Dr. Silvia Pozzi is Assistant Professor at the Université Laval's Brain Research Center in Quebec City specializing in ALS Research. She recently was an author on a paper reviewing the current state of antibody therapies for ALS.  She joined us on Endpoints to discuss the current outlook for these therapies in the ALS space – as well as what the future might hold for these treatments.Support the show: https://www.als.net/donate/See omnystudio.com/listener for privacy information.

East to West with Nick and Rob
Better Call Chicken Lady

East to West with Nick and Rob

Play Episode Listen Later Jul 17, 2022 33:39


E2W Covers all things TV/STREAMING, Ozark, Better Call Saul, The Boys, Obi Wan, Stranger Things, Barry, and the Triumphant return of The Kids in the Hall! Recommendations & Links 4 Life: Please support The Angel Fund for ALS Research and visit the Baseball is life website where the 100 Innings of baseball is back in 2022! https://baseballismy.life Spotlight on Local Businesses: Trios Spa, Skin Care Studio 124 Washington St, Suite 5 Norwell MA 02061 781-733-8668 WWW.TRIOSPA.GLOSSGENIUS.COM. RATE AND REVIEW THE SHOW on iTunes!!! Email the show @ EasttowestwithNickandRob@gmail.com Tweet us at @NickandRobE2W Be sure to check out Talkingflick.com (a movie review podcast) as well as .... Nick's Movie blog: Reelwatchability.com The Home Page of Nick and Rob https://www.nickandrobe2w.com Uncle Bookie Sports Cards and collectibles on eBay https://www.ebay.com/usr/unclebookiesportscardsandcollectibles Sponsorships: on for this episode: Anchor the only place to pod! Disclaimer *Squid Game is not the E2W biographical story of Nick and Rob. Wendy, if you just let the kids turn the volume up to eleven, they will be able to hear Stonehenge! --- Support this podcast: https://anchor.fm/easttowestwithnickandrob/support

Connecting ALS
"A Pivotal Time in ALS Research…"

Connecting ALS

Play Episode Listen Later May 19, 2022 19:36


This week, Jeremy talks to Jim Essey, a business executive and board member of the American Brain Foundation whose family established the Sheila Essey Award for ALS Research. Jim reflects on the progress made in ALS research over the years and shares why he sees hope on the horizon.Learn more about the Sheila Essey Award for ALS Research at https://www.als.org/research/research-we-fund/fellowships/sheila-essey-award-als-researchLearn more about ALS research at https://www.als.org/research/research-we-fundThis episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Connecting ALS
The 2022 Sheila Essey Award Winner…

Connecting ALS

Play Episode Listen Later Mar 31, 2022 20:51


This week Jeremy talks to Dr. Matthew Kiernan, a neurologist at the Brain and Mind Centre at the University of Sydney in Australia and the recipient of the 2022 Sheila Essey Award about the state of ALS research. Learn more about the Sheila Essey Award for ALS Research at https://www.als.org/research/research-we-fund/fellowships/sheila-essey-award-als-researchThis episode is brought to you by The ALS Association in partnership with CitizenRacecar.

East to West with Nick and Rob

The Season 3 premiere is here!! We're finally back and E2W kicks off with a Golden Statue! E2W talks all things Oscar! The 94th Academy Awards will air on ABC, March 27, 2022. Before the show get caught up with Nick and Rob. Recommendations: https://tsames.blogspot.com/2022/03/academy-awards-2021.html (Oscar Predictions on REELWATCHABILITY.COM) Links 4 Life: Please support The Angel Fund for ALS Research and visit the Baseball is life website where the 100 Innings of baseball is back in 2021! https://baseballismy.life/100innings/100-innings-2021/https:// Spotlight on Local Businesses: Trios Spa, Skin Care Studio 124 Washington St, Suite 5 Norwell MA 02061 781-733-8668 WWW.TRIOSPA.GLOSSGENIUS.COM. RATE AND REVIEW THE SHOW on iTunes!!! Email the show @ EasttowestwithNickandRob@gmail.com Tweet us at @NickandRobE2W Be sure to check out Talkingflick.com (a movie review podcast) as well as .... Nick's Movie blog: Reelwatchability.com The Home Page of Nick and Rob https://www.nickandrobe2w.com Sponsorships: on for this episode: Anchor the only place to pod! Disclaimer *Squid Game is not the E2W biographical story of Nick and Rob Everybody Listen, Listen, La La Land did not win Best Picture, the winner is...Stonehenge! --- Support this podcast: https://anchor.fm/easttowestwithnickandrob/support

Connecting ALS
"ALS Research in 2022…"

Connecting ALS

Play Episode Listen Later Jan 20, 2022 30:27


This week, Jeremy looks to the year ahead in ALS research with Dr. Kuldip Dave, Vice President of Research at The ALS Association, and digs into a drug rescue analysis project with Dr. Dave Ennist, CEO and Chief Science Officer at Origent Data Sciences.Learn more about The ALS Association's research program at https://www.als.org/researchTo get involved in ALS research go to https://www.als.org/research/how-can-i-get-involved-research-if-i-am-ineligible-clinicalThis episode is brought to you by The ALS Association in partnership with CitizenRacecar.

WBZ NewsRadio 1030 - News Audio
UMass Chan Medical School Scientists Make Crucial Progress In ALS Research

WBZ NewsRadio 1030 - News Audio

Play Episode Listen Later Dec 23, 2021 0:39


CReATe Connect Podcast
CReATe Author Series: Ep. 3 - Dr. Michael Benatar and Neurofilament Biomarkers for ALS

CReATe Connect Podcast

Play Episode Listen Later Dec 22, 2021 36:33


Dr. Michael Benatar is the Walter Bradley Chair in ALS Research, a Professor of Neurology at the University of Miami Miller School of Medicine and the Principal Investigator of the CReATe Consortium. In this interview, he will discuss the CReATe Consortium's recent paper titled "Validation of serum neurofilaments as prognostic and potential pharmacodynamic biomarkers for ALS". The interview highlights the specific ways in which validated biomarkers could benefit therapeutic development for ALS.

Endpoints
Dr. Kyle Denton: Induced Pluripotent Stem Cells in ALS Research

Endpoints

Play Episode Listen Later Dec 16, 2021 21:18


One of our most powerful new tools in recent years for in vitro experiments are something called induced pluripotent stem cells, or iPSCs. iPSCs are created with a technique that allows scientists to take living cells, often skin cells, from an adult human and revert them to the state of a stem cell, which can then be grown into any kind other kind of cell in the body – including cells affected by ALS like motor neurons. To further explain what an iPSC is and how we use them in our research to end ALS, we're joined today by Dr. Kyle Denton, ALS TDI's director of Cell biology. Support the show: https://www.als.net/donate/ See omnystudio.com/listener for privacy information.

als denton ipsc ipscs als research induced pluripotent stem cells als tdi
East to West with Nick and Rob
It's a Pod Eat Pod World

East to West with Nick and Rob

Play Episode Listen Later Oct 12, 2021 63:22


As the Fans requested: E2W Recast/Reboot Cheers! Popped Bubble Talk: Red Sox nation is ecstatic from the Sox win over the hated Yankees and E2W deep dive on all things Patriots after the Tom-pa v Bill Bowl. Nick and Rob give you their Slow Cooker Favorites.  Recommendations: Nick tips his hat to the Daniel Craig Bond Farewell-No Time to Die and enjoyed HBO's The Way Down Documentary. Rob recommends HEELS on STARZ, as well some returning shows like Shipping Wars and Storage Wars (Barry is back on Storage Wars!!!) Please support The Angel Fund for ALS Research and visit the Baseball is life website where the 100 Innings of baseball is back in 2021! https://baseballismy.life/100innings/100-innings-2021/  Be sure to check NickandRobE2W.com where you can vote on the E2W SNL Draft as well as for Rob's articles on Julian Edelman and Sports Card Collecting (make sure to check out www.georgepepsbaseballcards.com) as well as Nick's amazing post, predicting the 2021 MLB Season division winners and WS matchup! You read it here first!!!    Links 4 Life:  https://www.fatshack.com (Las Vegas Restaurant is the best!)    https://doubleback.com  https://www.pinkboxdoughnuts.com   The Cod Father Fish n Chips Las Vegas www.thecodfatherlv.com  Mani Pedi: https://www.havynailbeautybar.com     RATE AND REVIEW THE SHOW on iTunes!!!  Email the show @ EasttowestwithNickandRob@gmail.com Tweet us at @NickandRobE2W   Be sure to check out Talkingflick.com (a movie review podcast) as well as .... Nick's Movie blog: Reelwatchability.com The Home Page of Nick and Rob https://www.nickandrobe2w.com     Sponsorships: on for this episode: Anchor the only place to pod!       Braised Stonehenge with Turnips and Cabbage.  --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/easttowestwithnickandrob/support

Connecting ALS
"Identifying an Earlier Domino in Cellular Breakdown Connected to ALS…"

Connecting ALS

Play Episode Listen Later Aug 26, 2021 21:43


This week, Jessica and Jeremy are joined by Dr. Jeffrey Rothstein, professor of neurology and neuroscience and the founding director of the Robert Packard Center for ALS Research at Johns Hopkins University School of Medicine, and Dr. Alyssa Coyne, a postdoctoral fellow at Johns Hopkins. Drs. Rothstein and Coyne discuss their recent publication of research identifying a cellular defect common in ALS and what it means for research into the disease going forward.To read more about the role CHMP7 accumulation plays in cell degradation go to https://www.nih.gov/news-events/news-releases/researchers-identify-cellular-defect-common-familial-sporadic-forms-alsLearn more Dr. Coyne's research at https://www.als.org/blog/meet-alyssa-coyne-2018-milton-safenowitz-postdoctoral-fellowLearn more about The ALS Association's Milton Safenowitz Postdoctoral Fellowship Program at https://www.als.org/research/research-we-fund/fellowships/milton-safenowitz-postdoc-fellowship-programDive deeper into the impact of the Milton Safenowitz Postdoctoral Fellowship Program at https://www.connectingals.org/episodes/recruiting-new-researchers-to-the-search-for-treatments

Rob Dibble Show
Alex Cavaliere and ALS Advocate Michelle Lorenz on ALS Research ( I AM ALS)

Rob Dibble Show

Play Episode Listen Later Aug 25, 2021 17:31


Ashley Cavaliere is an air personality at KC 101. Her sister, Alex has ALS, and is too far along for trial programs. Proposing a bill to push a "Right to Try" bill to allow more access to experimental medicine. I AM ALS.org

AFTENKLUBBEN
Omvendelsesterapi med Susanne Branner Jespersen

AFTENKLUBBEN

Play Episode Listen Later Aug 25, 2021 14:50


Otte procent af danske køns- og seksuelle minoriteter, såsom homoseksuelle og transpersoner, har oplevet at blive forsøgt »omvendt« fra deres seksuelle orientering eller kønsidentitet af personer i deres omgangskreds. Det fremgår af en ny undersøgelse udarbejdet af Als Research. Daniel Cesar taler med Susanne Branner Jespersen, som er sekretariatschef i LGBT+ Danmark, om denne omvendelsesterapi og om hvorvidt regeringens forbudsforslag kan være løsningen.

NATURLIGVIS - en podcast om naturvidenskab
Sex, lyt og lær – om skyld, skam og orgasmer (1:2)

NATURLIGVIS - en podcast om naturvidenskab

Play Episode Listen Later Jul 31, 2021 59:49


Siden 1970 har  seksualundervisning været et krav i grundskolen. Alligevel fungerer det ikke videre godt med det.  Det fremgår af en evaluering fra Als Research  af Sundheds- og seksualundervisning og familiekundskab (SSF), som seksualundervisning hedder for tiden. 600 folkeskoler og 350 friskoler blev evalueret. I evalueringen kan man bl.a læse, at: ”skolerne har generelt et større fokus på Sundhed og trivsel end på Køn, krop og seksualitet”, samt at ”af de lærere, der underviser (…), har kun et mindretal gennemført det frivillige kursus (…) på læreruddannelsen” hvorfor ”en betydelig andel af lærerne, [ikke] føler sig fagligt klædt på til at varetage undervisningen”. Medvirkende er Kristine Tiedt, der fortæller om hendes 'alternativ' til den mangelfulde seksualundervisning i tegneserien: Orgasmebogen. Du kan for øvrigt her læse om Kristine Tiedts arbejdsproces med bl.a. Orgasmebogen, ligesom du finder hende her på Instagram. Som lovet i podcasten hermed link til: Skamløs og Soft Spot. Hvis du vil vide med om fiktionalisering, som Kristine benytter i Orgasmebogen, kan du læse om det her: Fiktionalitet. Musik: Beastie Boys: Sabrosa, C.V. Jørgensen: Hvad Mere Er Der Egentlig At Sige og Intet Er Mig Helligt samt Pink Floyd med Nothing Part 14 og Careful with That Axe, Eugene og Cardi B og Megan Thee Stallion:WAP (Wet-Ass Pussy). Redaktion: Stine Juul og Catharina Leth og Nalle Kirkvåg; sidstnævnte klippede og sounddesignede  også denne podcast. NATURLIGVIS er som vanligt produceret af Polykrom Media i samarbejde med RU Radio.  

NATURLIGVIS - en podcast om naturvidenskab
Sex, lyt og lær – om skyld, skam og orgasmer

NATURLIGVIS - en podcast om naturvidenskab

Play Episode Listen Later Jul 31, 2021 59:49


Siden 1970 har  seksualundervisning været et krav i grundskolen. Alligevel fungerer det ikke videre godt med det.  Det fremgår af en evaluering fra Als Research  af Sundheds- og seksualundervisning og familiekundskab (SSF), som seksualundervisning hedder for tiden. 600 folkeskoler og 350 friskoler blev evalueret. I evalueringen kan man bl.a læse, at: ”skolerne har generelt et større fokus på Sundhed og trivsel end på Køn, krop og seksualitet”, samt at ”af de lærere, der underviser (…), har kun et mindretal gennemført det frivillige kursus (…) på læreruddannelsen” hvorfor ”en betydelig andel af lærerne, [ikke] føler sig fagligt klædt på til at varetage undervisningen”. Medvirkende er Kristine Tiedt, der fortæller om hendes 'alternativ' til den mangelfulde seksualundervisning i tegneserien: Orgasmebogen. Du kan for øvrigt her læse om Kristine Tiedts arbejdsproces med bl.a. Orgasmebogen, ligesom du finder hende her på Instagram. Som lovet i podcasten hermed link til: Skamløs og Soft Spot. Hvis du vil vide med om fiktionalisering, som Kristine benytter i Orgasmebogen, kan du læse om det her: Fiktionalitet. Musik: Beastie Boys: Sabrosa, C.V. Jørgensen: Hvad Mere Er Der Egentlig At Sige og Intet Er Mig Helligt samt Pink Floyd med Nothing Part 14 og Careful with That Axe, Eugene og Cardi B og Megan Thee Stallion:WAP (Wet-Ass Pussy). Redaktion: Stine Juul og Catharina Leth og Nalle Kirkvåg; sidstnævnte klippede og sounddesignede  også denne podcast. NATURLIGVIS er som vanligt produceret af Polykrom Media i samarbejde med RU Radio.  

Connecting ALS
"Finding Hope on the Horizon Through ALS Research…"

Connecting ALS

Play Episode Listen Later Mar 4, 2021 22:12


Welcome to Connecting ALS. This week, Mike and Jeremy are joined by Dr. Kuldip Dave, vice president of research at The ALS Association, to discuss some recent news in ALS research and signs of hope on the horizon.

Uncommon
Matt Keon of GenieUs

Uncommon

Play Episode Listen Later Feb 23, 2021 60:12


Get all the links mentioned in the episode here: bit.ly/206-mattkeonSkip through the episode: (00:04) - Welcome to Uncommon(00:22) - Guest introduction(00:28) - Icebreaker(01:30) - Childhood aspirations & influences(04:10) - Starting in adland(06:39) - Key principles from advertising(10:10) - The strategy in genomics(13:42) - Genomics: background & industry issues(21:08) - GenieUs: why motor neuron diseases?(24:23) - GenieUs' focus(30:14) - Why research deadends are good(34:14) - How GenieUs uses AI(37:54) - Industry material backorder issue(39:30) - GenieUs: funding & forging a way(43:56) - Lessons from team members(46:15) - Genomics: an outsider looking in(48:26) - Tech companies entering health(49:41) - Matt’s ideal question(52:52) - Morning & evening routine(53:46) - Best purchase under $200(55:31) - Book recommendations

Uncommon
Filling a gap in genomics for ALS & MND - Matt Keon of GenieUs

Uncommon

Play Episode Listen Later Feb 22, 2021 11:30


Get all the links mentioned in the episode here: bit.ly/206-mattkeon

Thesis Thursday
Nic Peña

Thesis Thursday

Play Episode Listen Later Feb 15, 2021 4:50


Hello, my name is Nic Peña, I am a senior at the University of Arizona studying neuroscience and biochemistry. I work…

Connecting ALS
"A Look Back on the Year in ALS Research…"

Connecting ALS

Play Episode Listen Later Dec 3, 2020 19:52


Welcome to Connecting ALS. We are joined by Dr. Jill Yersak, vice president of mission strategy at The ALS Association, who walks us through some of the highlights in ALS research from 2020, how ALS researchers persevered through the pandemic, and what has her excited heading into 2021.

The Lisa Show
Disagreeing, Election Prep, Scary Movies, Mini Book Club, ALS Research

The Lisa Show

Play Episode Listen Later Oct 15, 2020 105:36


Disagreeing without being Disagreeable (0:00:00) With the holidays coming up, it means so are all those uncomfortable political debates with your relatives. And this year it's even more intense with the presidential election in our midst! Are you the aggressive one at the dinner table or the one who tends to keep their head down pretending not to hear the commotion? Lucky for us, we get to talk to Emily Taylor next about how to have healthy discussions, despite the disagreements you might have with your great uncle Bob. Emily is a certified mediator and assistant director of the Center for Peace and Conflict Resolution at the BYU Law School. She is the author of “Raising Mediators: How Smart Parents Use Mediation to Transform Sibling Conflict and Empower their Children”.  Preparing for the Election (0:20:16) Politics can be overwhelming, especially now. The presidential election is coming up, but it's not the only thing we're voting on. Voting can be scary, I always feel like I'm not informed enough to vote for everything on the ballot. But not knowing should not stop us from voting. There are a ways that we can prepare a little more for the election. Here to discuss some of these ways is Political Science Professor Jeremy Pope.  Scary Movies (0:52:48) It's that time of month again... Time to stay in, pop some popcorn and watch a scary movie! I love scary movies, but I do have to say, sometimes I do get a little tired of watching the same 5 movies every October. I want to refresh my watchlist this October. Here to help us do that, is horror movie expert, Kendall Phillips, to share his recommendations with us.  Mini Book Club: Halloween Books (1:09:57) Rachel Wadham , of BYU Radio's Worlds Awaiting , talks with Lisa and Richie about the best Halloween themed books to read this month.  ALS Research Developments (1:28:03) We've invited Dr. Jill Yersak, the Vice President of Mission Strategy at The ALS Association, here on the show to share some of their most recent research developments concerning ALS.

The Lisa Show
Disagreeing, Election Prep, Scary Movies, Mini Book Club, ALS Research

The Lisa Show

Play Episode Listen Later Oct 15, 2020 105:35


Emily Taylor gives tips for handling disagreements, Jeremy Pope teaches how to prepare for the election, Kendall Phillips lists the best scary movies, Rachel Wadham gives Halloween book recommendations, Jill Yersak explains recent breakthroughs in ALS research.

Endpoints
Dr. Steve Perrin: What is a Clinical Trial?

Endpoints

Play Episode Listen Later Jul 7, 2020 23:52


Today on Endpoints, ALS TDI CEO Dr. Steve Perrin joins us to answer some frequently asked questions about clinical trials: how the process works, and what you can – and can’t – expect when you sign up to participate. To find more information about drug trials for ALS, you can visit our website here: https://www.als.net/als-research/als-clinical-trials/  or check out https://clinicaltrials.gov/ and search for ALS. Support the show: https://www.als.net/donate/ See omnystudio.com/listener for privacy information.

Endpoints
Day by Day: The Reich Family Fights ALS

Endpoints

Play Episode Listen Later May 29, 2020 25:07


When Corey Reich was diagnosed with ALS in 2007, at the age of 21, his family – his sister Clare, and their parents Ted and Wendy – knew they would do whatever they could to support him. Soon after, they discovered ALS TDI and decided that they would dedicated themselves to helping to further our mission to find effective treatments for the disease – as fundraisers, spokespeople, and even as employees. Today, we’re joined by the Reichs, who share their story of working to end ALS – together as a family. Support the show: https://www.als.net/donate/ See omnystudio.com/listener for privacy information.

Craft Beer Storm
Craft Brew News # 78 - Brewfests Going Virtual

Craft Beer Storm

Play Episode Listen Later May 15, 2020 16:04


Craft Brew News 05/15/20(Courtesy of Brewbound.com)Craft Beer Festivals Across the Country Go Virtual During COVID-19 PandemicThe COVID-19 pandemic has altered nearly every facet of life and commerce, but one particular area stands to be gutted more than almost any other: large scale events.In the beer industry alone, event casualties are numerous. The Brewers Association has now canceled three of its marquee events, including the annual Craft Brewers Conference in San Antonio, Texas, SAVOR beer and food pairing event in Washington, D.C., and HomebrewCon in Nashville, Tennessee. The Great American Beer Festival, the BA’s largest consumer-facing event and the largest beer festival and competition in the U.S., is still slated to take place September 24-27 in Denver, Colorado. Popular regional beer festivals have also pulled the plug on their 2020 events, including the Oregon Brewers Festival in Portland, Oregon, Bend Brewfest in Bend, Oregon, and Great Taste of the Midwest in Madison, Wisconsin.Without its annual mid-May Oklahoma Craft Beer Summit — a reliable fundraiser — the Craft Brewers Association of Oklahoma (CBOA) was facing a potential loss of thousands of dollars. A creative solution was needed.CBOA treasurer and COOP Ale Works director of sales and marketing Sean Mossman told Brewbound. “Just one day, kind of organically, it was like, ‘Hey, what if we move this online? What if we made this virtual?’” “Well, that would be cool, but then it’s just a conversation — how do we do beer? How do we make this a beer festival?”The Oklahoma Craft Beer Summit ’20 Quarantine Edition was born and planned in about a week, with the blessing of the Alcoholic Beverage Law Enforcement (ABLE) Commission of Oklahoma, Mossman said.Tickets for the sold-out virtual festival on May 15 came with a plethora of beers to sample and an evening of guided tastings and panel discussions about styles, brewing and the beer industry. Guests purchased tickets that included a kit of 24 beers from breweries across Oklahoma. Kits could be retrieved at designated pickup locations strategically placed across the state, where IDs would be checked against tickets, a provision of the ABLE Commission.With the help of sponsors and “monstrously low overhead,” Mossman said the virtual festival has helped the CBOA raise multiple times more money than a traditional in-person festival.“We’re spending about $3,000 to raise about $50,000, so we’re pretty fortunate,” he said. “This would take us probably three festivals to generate this much revenue. And really, our only real expense as a guild is probably our lobbyists at the Capitol. We’re pretty self-governed and self-run, but that is our biggest expense, and it’s the most necessary expense.”Untappd will also host a virtual beer festival online on June 13 and 14.Participants have the option of two experiences — one with beer shipped to them and one in which they purchase their own. The Drinking Socially Package costs $89.99 and includes 11 beers to samples during two virtual panels, $10 gift cards to the Untappd merchandise store and Half Time Beverage, the event’s retail partner and beer shipper. Beer packages can be shipped to ZIP codes in 28 states and Washington, D.C., according to local laws.The Stay at Home Stream package costs $15 and includes access to the virtual panels and is available everywhere.A portion of sales from both tickets will be donated to the Restaurant Strong Fund, which supports out-of-work service industry employees.Harpoon Brewery’s annual five-mile road race has taken runners through the streets of the brewery’s Boston neighborhood for 18 years, but this weekend, the 19th edition of the fundraising race will be virtual.The company’s website said “Run, walk, pushrim, handcycle, or skip 5 miles on Sunday, May 17th from your house, on a treadmill or on a trail using proper safety precautions,”.Entrants received a printable bib to wear during their run and a race bag filled with gifts from sponsors in the mail. Some race packages included T-shirts and beer and a ticket to a festival at the brewery in the future. The race raises funds for the Angel Fund for ALS Research.More than 3,000 runners have signed up, according to director of digital strategy Megan Baker.California ABC Investigation Finds Delivery Apps Allowing Minors to Order AlcoholAn investigation by the California Department of Alcoholic Beverage Control (ABC) found that third-party delivery services are “routinely delivering alcoholic beverages to minors,” according to an industry advisory posted by the regulatory agency and reported on by the the Washington Post and The Verge.The ABC wrote “Most concerning is that minors are routinely able to purchase alcohol through delivery from restaurants,”. “There have been instances in which the licensee’s own employees have done so, but a far greater rate has been evident among third-party delivery services. Licensees are responsible for these unlawful deliveries, and the Department encourages licensees to review the practices of these services and their reliance on them.”The ABC added that it has found that employees of third-party delivery services are “largely” ignoring guidelines setup to prevent the sale of alcohol to minors.In the advisory, the ABC reminded licensees that they are ultimately responsible for the delivery of alcoholic beverages away from their premises, even if those deliveries are made on their behalf by third-party services, and are “subject to arrest and criminal prosecution.” “This is so no matter what assurances the delivery service may have provided to the licensee,” the ABC stated.Idaho-Based Hardware Brewing Company Defies Executive Order, Risks LicenseKendrick, Idaho-based brewpub Hardware Brewing Company is at risk of losing its alcoholic beverage license after reopening in defiance of Gov. Brad Little’s executive order shutting down bars and restaurants, the Lewiston Tribune reported, citing a letter sent to the brewpub by the Idaho State Police.Although Little’s reopening plan would allow Hardware Brewing to open potentially on May 16 as part of a second wave of business reopenings if the state doesn’t record a significant increase in COVID-19 cases, the brewpub reopened to the public on May 1, including Lt. Gov. Janice McGeachin.Hardware co-owners Morgan, Doug and Christine Lohman discussed reopening on Laura Ingraham’s Fox News program Monday night. Christine Lohman explained that Hardware attempted “to survive on takeout” but there wasn’t enough business.“It is a destination place,” she said. “They do not drive 35 miles or more for me to come out in a hazmat suit and hand them a burger, so we’re starving slowly.”The conversation spilled over to the brewpub’s Facebook page, where the Hardware account stated: “This virus is totally overblown and is not killing the productive and healthy in our society.”Morgan Lohman told Ingraham that the family has hired San Francisco-based lawyer Harmeet Dhillon to represent the company. Dhillon specializes in “commercial litigation, employment law, First Amendment rights and election law matters,” according to her firm’s website.Craft Beer Storm Website: www.craftbeerstorm.com*** A Top 20 Podcast in Food on iTunes ***Subscribe to Craft Beer Storm Podcast iTunes: https://itunes.apple.com/us/podcast/craft-beer-storm/id1438117278?mt=2Michael Beara is the Host of Craft Beer Storm and Founder/Brewer at Beara Brewing Co. in Portsmouth, NH*** Interested in starting your own brewery? Our Portsmouth, NH TURNKEY facility is for sale! Follow link for more info:https://www.neren.com/Listing/2800-Lafayette-Rd-12A/5cdda2dabf34cb9150a7faebIf your Company, Hotel or Restaurant wants to book a CraftBeer Weekend or Craft Beer Evening for your guests or employees send an email to Michael@craftbeerstorm.com Michael BearaFounder/BrewerHost of "Craft Beer Storm" Podcastmichael@craftbeerstorm.comLinked In: https://www.linkedin.com/in/craft-beer-storm-podcast-30776075/**LISTEN to our Craft Beer Storm Podcast and share with a friend**Craft Beer Storm Podcast iTunes: https://podcasts.apple.com/us/podcast/craft-beer-storm/id1438117278Craft Beer Storm You Tube: https://www.youtube.com/channel/UCp3PVuCGmywNWlGFh0N0ukg?view_as=subscriberCraft Beer Storm Podcast Stitcher: https://www.stitcher.com/podcast/podcast-center-la-2/craft-beer-stormCraft Beer Storm Linked In: https://www.linkedin.com/in/craft-beer-storm-podcast-30776075/Craft Beer Storm Facebook: https://www.facebook.com/craftbeerstorm/Craft Beer Storm Instagram: https://www.instagram.com/craftbeerstorm/

WCG Clinical Services Fireside Chats
Raise Your Voices: Social Network Provides Safe Place for Patients to Share Stories and Influence Research

WCG Clinical Services Fireside Chats

Play Episode Listen Later May 6, 2020 15:45


In this episode, Brian Loew, founder and CEO of online patient portal Inspire, talks about the value to patients and caregivers of providing a safe and trustworthy online social network--a “peaceable kingdom,” as he calls it.Millions of patients representing 3,500 diseases--including many rare ones --come to Inspire.com for online community discussions focused on their own particular disease. The platform provides a place for meaningful conversations among patients and caregivers. It also allows them to share their insights in ways that advance clinical research. Patients want to support research, sometimes even initiating it themselves. And, more than ever, Loew says, researchers are interested in patient-reported information. If patients agree, they can also be connected to relevant clinical trials. Loew emphasizes that across all the conditions and forums, patients always have control over what data they share and where they share it--and in his experience, the more control they have, the more willing they are to share it. The recently added coronavirus section (www.inspire.com/coronavirus) also features video testimonials from patients with a variety of conditions describing why COVID-19 is disrupting their medical routines and threatening their health.Loew is a frequent speaker and writer on the topics of health-focused social networks and digital health. He sits on the boards of the Robert Packard Center for ALS Research at Johns Hopkins, and New Jersey Goals of Care. He was a “Red Jacket” recipient from PharmaVOICE magazine for his contributions to the industry.

WCG Clinical Services Fireside Chats
Raise Your Voices: Social Network Provides Safe Place for Patients to Share Stories and Influence Research

WCG Clinical Services Fireside Chats

Play Episode Listen Later Apr 28, 2020 15:45


In this episode, Brian Loew, founder and CEO of online patient portal Inspire, talks about the value to patients and caregivers of providing a safe and trustworthy online social network: a “peaceable kingdom,” as he calls it.Millions of patients representing 3,500 diseases—including many rare ones—come to Inspire.com for online community discussions focused on their own particular disease. The platform provides a place for meaningful conversations among patients and caregivers. It also allows them to share their insights in ways that advance clinical research. Patients want to support research, sometimes even initiating it themselves. And, more than ever, Loew says, researchers are interested in patient-reported information. If patients agree, they can also be connected to relevant clinical trials. Loew emphasizes that across all the conditions and forums, patients always have control over what data they share and where they share it—and in his experience, the more control they have, the more willing they are to share it. The recently added coronavirus section (Inspire.com/coronavirus) also features video testimonials from patients with a variety of conditions describing why COVID-19 is disrupting their medical routines and threatening their health.Loew is a frequent speaker and writer on the topics of health-focused social networks and digital health. He sits on the boards of the Robert Packard Center for ALS Research at Johns Hopkins, and New Jersey Goals of Care. He was a “Red Jacket” recipient from PharmaVOICE magazine for his contributions to the industry.

Connecting ALS
"Collaboration in ALS Research and the Implications of COVID-19 ..."

Connecting ALS

Play Episode Listen Later Apr 9, 2020 17:56


Welcome to Connecting ALS. In this episode we are focusing on collaboration in ALS research and implications of the COVID-19 pandemic.

Connecting ALS
"ALS Research Now and Into the Future..."

Connecting ALS

Play Episode Listen Later Mar 5, 2020 26:24


Welcome to Connecting ALS, what is now a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter.

Endpoints
What to Know About CMAP

Endpoints

Play Episode Listen Later Jan 27, 2020 16:30


 In this episode of the Endpoints Podcast, Dr. Theo Hatzipetros, the Director of Pharmacology at the ALS Therapy Development Institute (ALS TDI) joins us to discuss CMAP and the role it now plays at the lab. CMAP, which stands for Compound Muscle Action Potentials, is a technique used by neurologists to diagnose neuromuscular diseases and monitor disease progression. In mouse models of ALS used at the ALS TDI lab, CMAP can be used to detect and track disease progression before signs would be noticeable by Neuroscore, the traditional way of monitoring disease progression that relies on the human eye to detect it. Detecting signs of ALS earlier allows researchers to determine the efficacy of potential drugs quicker and ensures that the best drug candidates are advanced to the next stage for further testing. Support the show.

Connecting ALS
"ALS Research and the Therapy Development Process..."

Connecting ALS

Play Episode Listen Later Jan 9, 2020 40:52


Endpoints
What to know about AMX0035

Endpoints

Play Episode Listen Later Oct 31, 2019 8:34


In this episode of the Endpoints, Dr. Steve Perrin, CSO at the ALS Therapy Development Institute, sits down to talk about AMX0035, a drug consisting of a combination of two small molecule compounds: sodium phenylbutyrate and tauroursodeoxycholic acid (TUDCA). Amylyx, the sponsor of AMX0035, recently completed enrollment of a 132 participant phase 2 trial. To learn more about the ALS Therapy Development Institute and our mission to end ALS, click here. Support the show.

Endpoints
Jeff Roosa: Uniting First Responders to End ALS

Endpoints

Play Episode Listen Later Sep 18, 2019 20:14


In this episode of the Endpoints, Jeff Roosa, Lee, MA Chief of Police, joins Gabrielle Bellitti, Outreach and Engagement Specialist at ALS TDI, to talk about living with ALS and uniting first responders to raise money for ALS research through Arrest & Extinguish ALS.  You can access all episodes of the Endpoints Podcast for free by visiting www.als.net/endpoints and registering. Support the show.

Endpoints
What to know about CuATSM clinical trials

Endpoints

Play Episode Listen Later Sep 18, 2019 10:41


In this episode, Dr. Fernando Vieira, CSO at the ALS Therapy Development Institute (ALS TDI), joins us to discuss Copper ATSM (CuATSM)clinical trials. CuATSM is a small molecule drug sponsored by the company Collaborative MedicinalDevelopment (CMD). They recently completed enrollment of a small, Phase 1 clinical trial in Australia. You can access all episodes of the Endpoints Podcast for free by visiting www.als.net/endpoints and registering. Support the show.

Endpoints
What Do We Know About C9ORF72?

Endpoints

Play Episode Listen Later Sep 18, 2019 12:02


In this episode of the Endpoints, Dr. Fernando Vieira explains what we know so far about C9ORF72, a gene which has been implicated in up to 40% of cases of familial ALS. C9ORF72was discovered to be a cause of ALS 8 years ago but there is still a lot for researchers to learn about its unique characteristics. Dr. Vieira talks about some of the hurdles to overcome and what researchers are doing right now to try to address this mutation. You can access all episodes of the Endpoints Podcast for free by visiting www.als.net/endpoints and registering. Support the show.

Voices of UMassMed
Running the Boston Marathon to fund ALS research

Voices of UMassMed

Play Episode Listen Later Apr 5, 2019 22:12


Members of the UMass ALS Cellucci Fund Boston Marathon team say they will hold loved ones who have fought the disease close to heart on April 15, when they run 26.2 miles to support amyotrophic lateral sclerosis research underway at UMass Medical School.

Galley Stories®
EP 11 Captain Sean Dwyer- Like Father, Like Son- Out Of the Shadows and into the Sun.

Galley Stories®

Play Episode Listen Later Mar 26, 2018 54:28


Join us as Captain Sean Dwyer Of The F/V Brenna A shares his Familie's Story of Adventure and Heartbreak. From the playgrounds of Shipyards to the Wheelhouse in the Bering Sea. As a Request from Sean, Please Donate to ALS Research, the Families Choice place for donations to go is ALS Therapy Development Institute, you can find them at https://www.als.net/captainsean/ 

Greek Life Today: A Fraternity & Sorority Podcast | Higher Ed | Student Affairs
GLT 001: Raising $579,000 for ALS research with Sigma Alpha Epsilon at Carnegie Mellon

Greek Life Today: A Fraternity & Sorority Podcast | Higher Ed | Student Affairs

Play Episode Listen Later Nov 19, 2017 30:56


In the spring of 2014, long-time Sigma Alpha Epsilon advisor Bob Dax was diagnosed with ALS. Devastated by the news, the Brothers dedicated their 2014 philanthropy, Donut Dash, to Bob and set their sights on raising $100,000 for ALS research that year. This is the story of how they reached that goal and, ultimately, raised ... Read more Sigma Alpha Epsilon at Carnegie Mellon raised $579,000 for ALS research The post Sigma Alpha Epsilon at Carnegie Mellon raised $579,000 for ALS research appeared first on Greek Life Today.

ALS Podcast
ALS Research Podcast - Biomarkers

ALS Podcast

Play Episode Listen Later Feb 9, 2017 27:47


In Part 3 of the ALS Research Podcast Series with Dr. Jill Yersak, we discuss the significance of biomarkers in understanding ALS progression and developing new treatments. Dr. Yersak answers questions on this topic such as: What are biomarkers? How does one identify a biomarker for ALS? Why are biomarkers important for ALS research? What is the future of this avenue of study? Listen, subscribe, and learn more about biomarkers and other aspects of ALS research at www.alsa.org/research/ 

ALS Podcast
What is ALS Research? Podcast with Dr. Jill Yersak

ALS Podcast

Play Episode Listen Later Nov 30, 2016 34:07


ALS is a difficult and complicated disease. Most people who are affected by ALS have not spent much time researching it until they or someone that they care for has been diagnosed. Everybody has questions, from the very general understanding of the disease to details about research, genetics, and more. Dr. Jill Yersak, Manager of Research Communications at The ALS Association, is sharing her expertise in a running series on ALS research questions. In this Podcast, Dr. Yersak takes part in a conversation by talking about What is ALS research? Each year, people across the country and around the world donate to fund ALS research. In this podcast, Dr. Jill Yersak from The ALS Association helps answer the question - What is ALS Research? Why is it so complicated? What makes it take so long to complete? Learn more about ALS, research, and Chapter services at www.alsa.org 

als als association als research research communications
Beyond The Edge Radio
9/4/2016 Cat and Tess the Mountain Gypsies with special guest Dana Wingerd

Beyond The Edge Radio

Play Episode Listen Later Sep 6, 2016 121:24


The kids are back in school and labor day weekend is upon us as Eric and Marie welcome back our favorite ladies of the Paranormal world the Mountain Gypsies Cat Young, Tess Huges with special guest Dana Wingerd. In the first half hour Panic'D and Dark Shadow Ghost Tours own Shawn Donley and Marianne Donley will be joining us live for a new location in the "Haunted Spotlight." Then at 8:30 pm Est, we welcome back the lovely ladies who will be sharing their "Mountain Magic" with us and Dana will be sharing a truly hair raising encounter of her journey in darkness and back to the light, all thanks to the help of the healing from the Mountain Gypsies. This is a show of healing and inspiration that you don't want to miss, so make plans to join us this week to hear a fascinating journey from darkness to light and what you can do to protect yourself from the dark forces that surround us daily, this week on BTE Radio with the Mountain Gypsies and Dana Wingerd. About the MOUNTAIN GYPSIES Cat Young and Tess Hughes CAT YOUNG Lecturer, Spiritual Adviser, Radio Host, Ordained Minister, Spiritual Warrior and so much more. She is blessed with a Cherokee/Scottish/Gypsy lineage of gifted, spiritual loved ones. Spiritually Gifted in so many ways,Cat is used by God for whatever he needs her to be at that moment.Cat is hard to label with the ability to have the sight, healing, abd seeing through the veil. She is a southern woman and everything that goes with that, Healer, Reiki Master/Teacher, Essential Bars Facilitator, Mountain Healer and Heritage Healer, an Ordained Minister, Aesthetician, Cosmetologist, plus more and continues in education on healing. Cat fights the darkness, she is of the Light. Cat Lecturers and goes about speaking as needed. She will and has assisted on haunted investigations and exorcisms. She is a Warrior for God, following the teachings of Jesus Christ, she does not condemn, it is not her job. She was blessed with gifted children, one works along side her doing healing, her name is Tess Hughes (very gifted child). Cat had a Shaman tell her "some people are a body looking for light", you Cat are a Light trying to stay contained in a body and most people will not understand you, Cat says, Ahhh but that is my magic!!!! From Facebook TESSARAI LEE HUGHES Tess Hughes, born in the Appalachian Mountains of Tennessee, where Cherokee blood runs from all veins of her family. She also comes from a long lineage of those, gifted with the sight, that she uses for healing and paranormal investigating. She has always used true gifting to help those who are in need, through the love and healing power of God. Tess is also a gifted healer who is a Reiki Master / Teacher. She is also certified in Advanced QEEG and BIO & NEUROFEEDBACK, and AUDIO/VISUAL ENTRAINMENT. Tess is also a certified counselor. A wonderful gifted holistic healer and teacher. Through God's supernatural touch Tess received healing as a child to overcome leukemia which increased her understanding of those who are in need. As a child she had a deep wisdom and understanding of life that few have as adults . She is truly one that has been touched by God. Since birth her story is amazing and it starts with a fight for life since in the womb, but God had bigger plans and now she is an accomplished gifted seer/Mountain healer and Heritage Healer. She comes by this honestly through her well known, multi-gifted, mother,Cat Young. Cat joins Tess on the show when she is not working with or on other paracelebs. Cat has taught Tess the ways of their craft and strong family Cherokee/Scottish/Melungeon Gypsy ties. From the healings to the secrets the mountains and that the gypsies hold dear. To learn more about the Mountain Gypsies visit https://www.facebook.com/Mountain-Gypsies-754597404610251/?fref=ts About Dana Wingerd Dana is a paranormal investigator and co-founder of N.E.P.I Northeast Paranormal Investigations and the successful and long running Phenomenology event with her husband Chris. A native of Baltimore, Dana had her first paranormal experience when she was in the crib. Now a wife and mother, grandmother, Dana has embarked on a spiritual journey to find God and herself. She is a light worker who works closely with Cat and Tess the Mountain Gypsies. She has started her own new healing business with her daughter Julia, Like Mother Like Daughter. Shining light on the darkness. Together they make Christian Spa products to help protect, bring peace, healing and love to everyone. They are also doing Reiki and Spiritual Healings. Additionally, due to a family history with ALS, Dana has decided that a cure for ALS is not an option but a necessity. She will be holdin numerous fund raisers for the Packard Center for ALS Research. Visit Dana on Facebook at https://www.facebook.com/profile.php?id=100008492861453&fref=ts or https://www.facebook.com/likemotheranddaughter/?fref=ts Tune in September 4, 2016 starting at 8 pm for another episode of BTE Radio. www.beyondtheedgeradio.com

Nerd Alert News
Nerd Alert News Ep. 47 - Nintendo’s NX Revolution

Nerd Alert News

Play Episode Listen Later Jul 30, 2016 23:04


The Pokemon Go Plus accessory has been delayed for a couple months,  and Netflix will not in fact save Agent Carter.  In some more positive news the Ice Bucket Challenge is responsible for a major breakthrough in ALS Research!  Finally, the details have begun to leak on Nintendo’s upcoming NX console.  Nintendo’s plans are certainly very interesting and Chris will highlight all the details this week. To get more information on any of the articles referenced in the show, check out our shownotes: http://bit.ly/NerdAlert47 If you want to get in touch with the show there are a variety of ways to do so: Web: http://nerdalertnews.com Shownotes: http://shownotes.nerdalertnews.com E-mail: nerdalertnews247(at)gmail.com Twitter: @NerdAlertShow Facebook: www.facebook.com/NerdAlertShow Voicemail: TBD Submit Your News: http://submit.nerdalertnews.com Nerd Alert News is a proud member of the GonnaGeek Network.

ALS Podcast
Episode 73 - Chrissie Delaney Cohen on Participating in ALS Research

ALS Podcast

Play Episode Listen Later Jul 29, 2016 37:53


Chrissie Delaney Cohen lost her mother to ALS and her sister has lived with ALS for over 5 years. Recently, she travelled to the University of Miami to participate in ALS research studies to help understand the genetics of families affected by ALS. In this podcast, she talks about how she got involved in the program, what it entailed, and why others should search for more ALS studies for themselves. Learn more about ALS and how to get involved at www.alsphiladelphia.org 

ALS Today Audio Podcasts
ALS, dressed to the C9s

ALS Today Audio Podcasts

Play Episode Listen Later Oct 28, 2012 18:05


Jeff Rothstein MD PhD, director of the Packard Center for ALS Research at Johns Hopkins University School of Medicine, talks C9ORF72 and potential treatments for this form of ALS going forward. Read more: http://blogs.als.net/post/2012/10/29/ALS-dressed-to-the-C9s.aspx

The Armstrong and Getty Show (Bingo)
Ronnie Lott promotes his charity event; Lawrence Taylor got 6 years probation

The Armstrong and Getty Show (Bingo)

Play Episode Listen Later Mar 23, 2011


49er legend Ronnie Lott comes on to talk football with us and promote his charity event "Walk with a Champion" to benefit ALS Research; Lawrence Taylor got 6 years probation for having sex with an underage hooker; Nancy Grace went at it with a weatherman over CA's radiation risk; Glenn Beck may be leaving Fox News.

Golf Talk Radio with Mike & Billy Podcasts
Golf Talk Radio with Mike & Billy - 5.15.10 - Tom Watson, PGA & Senior PGA Tour Player & GTRadio Golf Trivia - Hour 2

Golf Talk Radio with Mike & Billy Podcasts

Play Episode Listen Later May 15, 2010 43:38


Tom Watson is one of the most enduring professional goflers since the late Sam Snead. In 2009, nearing his 60th birthday, he led the British Open much of the way before losing in a playoff. It was the feel-good sports story of the year, and will be talked about for as long as games are played and reported.     That stunning performance led to a revised British Open age limits that exempts him for at least five more years at the world’s oldest major championship. Watson has won it five times among his eight PGA Tour majors in a career further notable for memorable victories over Jack Nicklaus, golf’s best ever, on the biggest stages.Watson won 39 times on the PGA tour with an aggressive, fast-paced style. Six times he was PGA Player of the Year, five times the leading money winner. Playing mostly on the over-50 Champions Tour now, he has won 13 more times there including five senior majors.Watson was born in 1949 in Kansas City, Missouri, and has stayed, true to the Midwest’s solid values. He lives today on a farm outside Kansas City, and can be found doing chores and riding his wife’s cutting horses when he’s not on tour (he admits to falling off a horse only twice).His father Ray, a long time scratch player, introduced him to golf at age 6. A young Tom soon developed into a state amateur champion at age 17, and went on to play for Stanford University, earning a degree in psychology in 1971. He joined the PGA Tour that same year and won his first tournament, the Western Open, in 1974. After losing leads in both the 1974 and 1975 U.S. Opens, Watson had the reputation of a choker, which was broken following his break-through year in 1977, where he won both the Masters and the British Open.At the 1977 British Open, often referred to as the “Duel in the Sun” at Turnberry, Tom played the final two rounds in 65-65 to Jack’s 65-66, finishing with a clinching birdie. It’s been called the Tournament of the Century. In Watson’s 1982 U.S. Open win at Pebble Beach, he holed a touchy chip shot from the greenside rough to birdie the 71st hole—arguably one of the greatest pressure shots ever—and then birdied the 18th to top Nicklaus.After competing as part of the U.S. Team in the 1977, 1981, 1983 and 1989 Ryder Cups, Watson captained the 1993 U.S. Ryder Cup team through a closely contested tournament, pulling out the victory from behind in Sunday’s singles match.Throughout his career, Watson has been a respected sportsman and spokesman for the sport. He received the U.S. Golf Association’s prestigious Bob Jones Award for distinguished sportsmanship in 1987 and was elected to the PGA World Golf Hall of Fame the following year. In addition, Watson won Golfer of the Decade for the 1980’s, celebrating his 19 wins and 86 top-10 finishes over the decade.For 25 years Watson hosted the Children’s Mercy Golf Tournament, a benefit golf event featuring famous participants like Nicklaus, Arnold Palmer and Lee Trevino in his hometown of Kansas City, with proceeds going to a local children’s hospital. Over the 25 years, the tournament donated over $12 million to the hospital.In addition to Watson’s fundraising and volunteerism for the children’s hospital, he has also been tremendously influential in Clubs for Kids, which began in the 1980’s and was the precursor for The First Tee of Kansas City, for which Watson is the Chairman of the Advisory Board.When Watson’s long-time caddie, Bruce Edwards was diagnosed with ALS in 2003, Watson began searching for funding for a cure for the debilitating disease. Following Edwards’ death in 2004, Watson helped start the Bruce Edwards Foundation for ALS Research and the subsequent year he began the Bruce Edwards Celebrity Classic with renowned author, John Feinstein, raising nearly $3 million over the first five years of the tournament.Over the past several years, Watson has become increasingly involved in helping support our troops by participating in trips to Iraq in both 2007 and 2009, where he celebrated Thanksgiving with the troops, gave golf lessons and delivered donated golf equipment, just "delivering a little bit of home" to the troops during their tours. He has also visited and raised funds for our Wounded Warriors to whom he says we owe as much help as possible.Watson succeeded Snead as the second golf professional emeritus at the renowned Greenbrier resort, located in the Allegheny Mountains of West Virginia, which has been a favorite destination of his for over 30 years. He first fell in love with the place during the 1979 Ryder Cup which was the same week as his first child, Meg, entered into this world.Watson has a strong work and practice ethic and has admitted to hitting a “million practice balls” in order to continue honing his game. He’s considered one of the best foul weather players in the game, giving credit to his growing up in Kansas City, playing and practicing in the winter ice and snow.Especially following his 2008 hip replacement and 2009 performance at the British Open at age 59 ½, Watson is considered a hero to Baby Boomers who want to stay active in “the game of a lifetime.” Top teachers and players believe he’s swinging the club better today than he was in his prime.Watson carries solid credentials as a communicator. He does well-received clinics for charities, such as the First Tee, as well as his corporate sponsors, with a helpful demonstration of golf technique usually followed by revealing question-answer sessions and entertaining imitations of peers. He has done television commentary for ESPN and ABC.Watson’s monthly article in Golf Digest is the No. 1 golf magazine’s most popular instructional feature. He has always enjoyed helping pros and amateurs alike with straightforward, tough-love lessons, concentrating on the basic fundamentals of grip, body posture, and ball position, without which, he tells his pupils, they can't be taught.Through Tom Watson Design, Watson has produced over a dozen courses in the U.S. and abroad with a lot of hands on supervision. He keeps both the less-skilled players and varying wind conditions in mind as he works with the existing landscape to build beautiful, high quality courses. Watson’s first U.S. solo-designed project, Cassique (Kiawah Island, South Carolina) was named in the top 10 list of America’s Best New Private Courses by Golf Digest in 2001.Watson’s first instructional DVD, Lessons of a Lifetime, is being introduced in 2010, and will be followed by his fourth instruction book in 2011. Both the DVD and book focus on his time-tested swing tips -- and adjustments he has made and recommends to stay competitive. An earlier book on the short game, “Getting Up and Down,” with famed illustrator Tony Ravielli, was a NY Times best seller and became a golf classic.Tom constantly gives the credit for his success to the people who helped him throughout his life and career. In his early years his dad and Stan Thirsk built the foundation for his swing with a solid no-nonsense approach which served him well and from which his game blossomed. His desire, determination, and dedication had a lot to do with his success. This combination of mentors and a hard work ethic has been the key to a long and still continuing career.    www.tomwatson.comClick here for the Deal of the Week courtesy of Golflandwarehouse.com use promo code "GTR" for BIG discounts! Thank you to our GTR Partners please visit their sites and support the businesses that support GTR! Slickstix Avila Beach Golf Resort Blacklake Golf Resort Golflandwarehouse Avila La Fonda Hotel Inn at Avila Beach Email Mike and Billy at info@golftalkradio.com with questions, comments or whatever!

McGowan Institute for Regenerative Medicine
RMT Podcast #74 – Robert Bowser, PhD

McGowan Institute for Regenerative Medicine

Play Episode Listen Later Sep 16, 2009 15:07


Regenerative Medicine Today welcomes Robert Bowser, PhD.  Dr. Bowser is the Director of the ALS Research for the Pittsburgh Institute for Neurodegenerative Diseases and at the Center for ALS Research at the University of Pittsburgh.  He is also the Director of the ALS Tissue Bank, where he helps to create the largest such [...]