Podcasts about patient perspectives

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Best podcasts about patient perspectives

Latest podcast episodes about patient perspectives

The Pain Podcast
Episode 60: Unpacking nociplastic pain: Beyond damage, into perception

The Pain Podcast

Play Episode Listen Later Dec 11, 2024 32:36


Summary In this episode, Bart Van Buchem and Tim Beames discuss the complexities of nociplastic pain, a relatively new classification of pain that arises from altered nociception without clear evidence of tissue damage. They explore the implications of this classification for clinical practice, the importance of understanding patient perspectives, and the cultural considerations that influence pain terminology. The conversation highlights the challenges of diagnosing nociplastic pain and emphasizes the need for a broader understanding of pain experiences, including psychological factors. They also touch on the upcoming science session featuring Jo Nijs, which aims to further explore these topics. Takeaways - Nociplastic pain is a significant and ongoing debate. - Understanding pain mechanisms is crucial for effective treatment. - Classification of pain can influence treatment decisions. - Patients often seek acknowledgment for their pain experiences. - Cultural factors play a role in how pain is classified and understood. - Pain experiences are often complex and multifaceted. - A broader perspective on pain is necessary for effective management. - Nociplastic pain challenges traditional pain definitions and classifications. - Psychological factors must be considered in pain management. - Upcoming discussions will provide balanced perspectives on pain classification. Topics nociplastic pain, pain classification, chronic pain, pain management, clinical practice, pain terminology, patient perspectives, cultural considerations, pain complexity, treatment implications Chapters 00:00 Introduction to Nociplastic Pain 05:59 Clinical Implications of Nociplastic Pain 12:05 Patient Perspectives on Pain Terminology 18:00 Complexity of Pain Experiences 23:55 The Future of Pain Management Recorded November 2024 Useful Links Le Pub Website: www.lepubscientifique.com  Become a Le Pub member: https://www.lepubscientifique.com/premium-membership  Contact us: info@lepubscientifique.com Follow us: Twitter: @lepubscientifiq Instagram: @lepubscientifique LinkedIn: @LePubScientifique

ESCRS EuroTimes Podcast
IME Expert Podcast Series: Understanding Patient Perspectives

ESCRS EuroTimes Podcast

Play Episode Listen Later Dec 2, 2024 7:20


In this episode of the ESCRS IME podcast series on refractive surgery, Drs. Robert Ang and Pavol Vesely discuss the vital role of understanding patient expectations, building trust, and personalizing education on treatment options for each patient. They emphasize the importance of clear, proactive communication about potential risks and the need to set realistic expectations to enhance patient satisfaction. Be sure to check out the other insightful episodes in this podcast series! Independent medical education supported by Johnson & Johnson Vision (Gold), Zeiss (Silver), and STAAR Surgical (Silver).

AiArthritis Voices 360 Podcast
Episode 103 - Elevating The Patient Voice

AiArthritis Voices 360 Podcast

Play Episode Listen Later Nov 3, 2024 50:59


In this episode, co-hosts Leila and Brittany dive into the power of patient voices in transforming the healthcare experience for the AiArthritis community. They bring empathy and validation to stories submitted by listeners, highlighting real struggles with insurance, pharmacy issues, and the emotional toll of chronic illness. Brittany also shares key takeaways from the recent Autoimmune Community Summit, covering practical tips for self-management, understanding the influence of environmental factors, and the importance of owning and sharing your story to drive change. This episode is packed with relatable stories, actionable advice, and encouragement for anyone navigating autoimmune challenges. Tune in for new ways to elevate your voice and join a supportive community that understands. Episode Highlights Leila and Brittany discuss the impact of elevating patient voices in the AiArthritis community. Patient-submitted stories reveal real challenges with insurance, pharmacy issues, and living with chronic illness. Key insights from the Autoimmune Community Summit highlight the importance of self-management and environmental factors. Tips on using personal stories in healthcare advocacy help patients drive meaningful change. AiArthritis's "WTHellth" project aims to address systemic barriers in healthcare. The hosts share tools like communication aids and advocacy programs for patient empowerment.   Links & Resources Submit Your Story or Rant: aiarthritis.org/rant Patient Journey Resources: aiarthritis.org/patientjourney Advocacy Program Information: aiarthritis.org/advocacy Communication Aid for JIA Patients: aiarthritis.org/JIAcommunication Follow Our Conference Coverage: aiarthritis.org/conferences Read Our Blog for Patient Perspectives: aiarthritis.org/blog Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp Donate to Support the Show: https://www.aiarthritis.org/donate  Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE   Connect with our Co-Hosts:   Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren's disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.    Connect with Leila: Tiktok: @Lupuslifestyle.lei   Brittany Murray is a dedicated AiArthritis volunteer who has been living with Psoriatic disease for over 30 years. She loves to share her story to help others with AiArthritis diseases and to assist with advocacy and education work around hot topics like prior authorization and step therapy. She also started a blog and social community called ChronicDiseaseDiary to build a community of empowerment, love and support for those with chronic diseases or caretakers of those with chronic diseases.    Connect with Brittany: ChronicDiseaseDiary

PharmaTalkRadio
Incorporating Quantitative Values of Patient Perspectives into Trial Design

PharmaTalkRadio

Play Episode Listen Later Oct 25, 2024 21:00


Swallow Your Pride
340 – The Power of Qualitative Research in Speech and Language Pathology – Beatrice Manduchi PhD, MSc, BSc (SLP)

Swallow Your Pride

Play Episode Listen Later Sep 3, 2024


While we often like to talk about research findings that shows us statistical significance in data and solid numbers we can lean on for treatment approaches… What about the kind of data that ISN'T objectively measured? The kind that shows us what patients or other clinicians experience think, or believe. I'm talking about qualitative research! Is qualitative research viewed as “less reputable” than quantitative research? What kind of valuable information can we pull from patient experiences, opinions, and views? Beatrice Manduchi PhD, MSc, BSc (SLP) is here to talk all about it in today's episode of the Swallow Your Pride podcast! Beatrice is a speech-language pathologist who went from clinician to researcher and is currently working as a postdoc fellow at MD Anderson Cancer Center. Beatrice specializes in dysphagia, particularly in head and neck cancer. Tune into this episode to take a break from numerical data and explore the world of qualitative research and its impact on dysphagia! Link to show notes: https://syppodcast.com/340 TIMESTAMPS: Qualitative Research Interest (00:03:20) Importance of Qualitative Methods (00:05:17) Qualitative Research vs. Quantitative Research (00:06:07) Impact of Qualitative Research on Dysphagia (00:09:37) Patient Perspectives in Research (00:10:51) Integrating Qualitative Research with Clinical Practice (00:12:14) Conducting Qualitative Research (00:15:02) Data Saturation in Qualitative Research (00:17:22) The Role of Frameworks in Qualitative Research (00:20:18) Passion for Patient-Centered Research (00:22:18) Understanding Bias in Interviews (00:23:16) Nuances of Interview Guides (00:24:18) Proactive vs. Reactive Therapies (00:26:11) Patient Comfort with Therapies (00:29:00) Streamlined Processes in Therapy (00:30:22) Patient Education Importance (00:32:52) Setting Diet Goals (00:33:56) Shared Decision-Making Challenges (00:38:01) Surprising Findings from the Study (00:39:17) Next Steps in Research (00:41:22) The post 340 – The Power of Qualitative Research in Speech and Language Pathology – Beatrice Manduchi PhD, MSc, BSc (SLP) appeared first on Swallow Your Pride Podcast.

The EMJ Podcast: Insights For Healthcare Professionals
Bonus Episode: Patient Perspectives of Navigating Life with Primary Biliary Cholangitis

The EMJ Podcast: Insights For Healthcare Professionals

Play Episode Listen Later Sep 3, 2024 47:37


In this bonus episode of the EMJ podcast, co-hosts Eleonora De Martin, Consultant transplant hepatologist at the Centre Hépato-Biliaire, Paul Brousse Hospital in France, and patient advocate, Ingo van Thiel, from the German Liver Aid Association- Deut-sche Leber hilfe e.V., provide key insights from both the patient and clinician perspectives surrounding crucial aspects of PBC that are of importance to both patients and healthcare professionals (HCPs) alike. They highlight the burden of PBC, its impact on a patient's quality of life, the importance of empowering patients in their PBC care, and the collaborative effort between patients and HCPs in managing PBC, thus enabling HCPs to understand the lived experiences of patients and how it impacts their daily lives and well-being. This podcast was organised and funded by GSK to enhance the continuing education needs and practices of healthcare professionals working with patients with Primary Biliary Cholangitis (PBC).

Keeping Current CME
Breaking Down the Burden of IgA Nephropathy With Clinician and Patient Perspectives

Keeping Current CME

Play Episode Listen Later Aug 27, 2024 18:01


Are your patients' kidneys fighting a silent battle? Our experts give insight on earlier detection of IgAN and react to a real patient's experience. Credit available for this activity expires: 8/23/25 Earn Credit / Learning Objectives & Disclosures: https://www.medscape.org/viewarticle/1001513?ecd=bdc_podcast_libsyn_mscpedu

The Future of Everything presented by Stanford Engineering
Best of: A more thoughtful approach to technology can improve medical care

The Future of Everything presented by Stanford Engineering

Play Episode Listen Later Aug 9, 2024 28:02


Today, we're re-running a fascinating conversation with Sara Singer, a Stanford professor of medicine, and an expert on integrated healthcare. Anyone who's had to navigate the healthcare system knows it's extremely complex, and care can often feel disjointed or inefficient. In this episode, Sara highlights new technologies that could improve integration within the healthcare system, ultimately enhancing a practitioners' ability to care for patients. We hope you'll take another listen and enjoy.Episode Reference Links:Stanford Profile: Sara SingerConnect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads or Twitter/XConnect with School of Engineering >>> Twitter/XChapters:(00:00:00) IntroductionRuss Altman introduces guest Sarah Singer, a professor of medicine and organizational behaviour at Stanford University(00:02:25) Defining Integrated CareThe concept of integrated care and its significance in improving patient experience.(00:03:37) Global Implementation of Integrated CareThe global challenges and successes in implementing integrated care.(00:04:45) Cost Implications of Integrated CareThe potential cost-saving benefits of integrated care through efficient coordination.(00:05:34) COVID-19's Impact on Healthcare IntegrationThe pandemic's dual role in exposing challenges and providing opportunities for integrated care.(00:07:45) The Role of AI in Healthcare's FutureAI's potential in healthcare and the importance of user collaboration.(00:09:38) Importance of Iterative DevelopmentThe need for continuous collaboration in healthcare technology development.(00:12:16) Patient Perspectives in Tech DevelopmentThe value of integrating patient feedback into healthcare technology.(00:13:20) Consumer Suggestions for Health CareHow patient feedback has influenced health care improvements.(00:16:49) Iterative Development of Health Care TechnologiesThe iterative process of developing health care technologies with continuous input from end users.(00:24:29) Advice for Healthcare TechnologistsAdvice for technologists on developing useful and accepted healthcare tools.(00:27:22) Conclusion Connect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads or Twitter/XConnect with School of Engineering >>> Twitter/X

Slice of Healthcare
#461 - Manny Krakaris, CEO at Augmedix

Slice of Healthcare

Play Episode Listen Later Aug 7, 2024 18:46


Join us on the latest episode, hosted by Jared S. Taylor! Our Guest: Manny Krakaris, CEO at Augmedix.What you'll get out of this episode:Revolutionizing Medical Documentation: Manny Krakaris discusses how Augmedix repurposes doctor-patient conversations to create medical notes, streamlining clinician workflow.Scaling with AI: Insights into how Augmedix has evolved from manual note-taking to leveraging AI for automated medical documentation.Commure Acquisition: The strategic fit and future plans following Augmedix's acquisition by Commure, aiming to integrate a broader range of healthcare solutions.Addressing Clinician Burnout: How Augmedix's technology reduces clinician workload and fractional quitting, enhancing patient care and access.Patient Perspectives on AI: Manny Krakaris shares thoughts on patient acceptance of AI in healthcare and the importance of meaningful AI utility.To learn more about Augmedix:Website https://augmedix.com/ LinkedIn https://www.linkedin.com/company/augmedixinc/ Guest's Socials:LinkedIn https://www.linkedin.com/in/manny-krakaris-3341634/Our sponsors for this episode are:Sage Growth Partners https://www.sage-growth.com/Quantum Health https://www.quantum-health.com/Show and Host's Socials:Slice of HealthcareLinkedIn: https://www.linkedin.com/company/sliceofhealthcare/Jared S TaylorLinkedIn: https://www.linkedin.com/in/jaredstaylor/WHAT IS SLICE OF HEALTHCARE?The go-to site for digital health executive/provider interviews, technology updates, and industry news. Listed to in 65+ countries.

Advances in Women's Health
Importance of a Timely Postpartum Depression Diagnosis: Patient Perspectives

Advances in Women's Health

Play Episode Listen Later Jul 8, 2024


Host: Matt Birnholz, MD Guest: Kay Matthews, LCHW Ms. Kay Matthews has lived experience with postpartum depression and now advocates for others as the Executive Director and Founder of Shades of Blue, which is dedicated to breaking cultural barriers in maternal mental health. Tune in to hear her speak with Dr. Matt Birnholz about her journey with postpartum depression, barriers that can prevent or delay patients from seeking care, and strategies for combatting stigma and ensuring a timely diagnosis. Sage Therapeutics and the Sage Therapeutics logo are registered trademarks of Sage Therapeutics, Inc.Sage Therapeutics, Inc. All rights reserved.Sage Therapeutics ©2024 MRC-PPD-00792 06/2024

Medical Industry Feature
Importance of a Timely Postpartum Depression Diagnosis: Patient Perspectives

Medical Industry Feature

Play Episode Listen Later Jul 8, 2024


Host: Matt Birnholz, MD Guest: Kay Matthews, LCHW Ms. Kay Matthews has lived experience with postpartum depression and now advocates for others as the Executive Director and Founder of Shades of Blue, which is dedicated to breaking cultural barriers in maternal mental health. Tune in to hear her speak with Dr. Matt Birnholz about her journey with postpartum depression, barriers that can prevent or delay patients from seeking care, and strategies for combatting stigma and ensuring a timely diagnosis. Sage Therapeutics and the Sage Therapeutics logo are registered trademarks of Sage Therapeutics, Inc.Sage Therapeutics, Inc. All rights reserved.Sage Therapeutics ©2024 MRC-PPD-00792 06/2024

Medical Industry Feature
Importance of a Timely Postpartum Depression Diagnosis: Patient Perspectives

Medical Industry Feature

Play Episode Listen Later Jul 8, 2024


Host: Matt Birnholz, MD Guest: Kay Matthews, LCHW Ms. Kay Matthews has lived experience with postpartum depression and now advocates for others as the Executive Director and Founder of Shades of Blue, which is dedicated to breaking cultural barriers in maternal mental health. Tune in to hear her speak with Dr. Matt Birnholz about her journey with postpartum depression, barriers that can prevent or delay patients from seeking care, and strategies for combatting stigma and ensuring a timely diagnosis. Sage Therapeutics and the Sage Therapeutics logo are registered trademarks of Sage Therapeutics, Inc.Sage Therapeutics, Inc. All rights reserved.Sage Therapeutics ©2024 MRC-PPD-00792 06/2024

NeurologyLive Mind Moments
118: Gaining Patient Perspectives on Impact of Narcolepsy

NeurologyLive Mind Moments

Play Episode Listen Later Jun 28, 2024 18:53


Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, Anne Marie Morse, DO, FAAN, a pediatric neurologist and sleep medicine specialist at Geisinger Medical Center, sat down at the 2024 SLEEP Annual Meeting to discuss a poster presentation highlighting a listening analysis that characterized the struggles and unmet needs of people with narcolepsy. in the discussion, Morse outlined some of the major findings, including the rates of missed and misdiagnosis, how cataplexy impacts daily life, and some of the other comorbidities associated with the condition. She spoke on the value of gaining patient perspectives and using their descriptions for their disorders helps in understanding true unmet needs. Furthermore, she spoke on the importance of a strong patient-clinician relationship, the ability to communicate openly, and the steps following diagnosis to ensure effective long-term treatment outcomes.  Looking for more sleep disorders discussion? Check out the NeurologyLive® sleep disorders clinical focus page. Episode Breakdown: 1:10 – Motivations behind conducting listening analysis 3:15 – Major clinical takeaways from study; notable quality of life impairments in narcolepsy 7:00 – Impact of cataplexy and patients' overreaction 9:50 – Neurology News Minute 12:20 – Reasons for missed and misdiagnosis 14:50 – Early tips to pathing patients towards treatment success The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: FDA Grants Traditional Approval to Elevidys Gene Therapy for Ambulatory DMD, Accelerated Approval for Nonambulatory Patients FDA Approves Efgartigimod as New Treatment for Chronic Inflammatory Demyelinating Polyneuropathy FDA Approves Pitolisant for Excessive Daytime Sleepiness in Pediatric Narcolepsy Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

Conquering Your Fibromyalgia Podcast
Ep 152 A Neurospicy Psychiatrist's Journey with Fibromyalgia: Dr. Stacey Greeter Part 1

Conquering Your Fibromyalgia Podcast

Play Episode Listen Later May 22, 2024 36:31


Text Dr. Lenz any feedback or questions Navigating Medical Fields as Both Doctor and Patient: Perspectives on Autism, ADHD, and FibromyalgiaThis podcast episode features a conversation with Dr. Stacy Greeter, a psychiatrist who discusses her experiences being diagnosed with autism, fibromyalgia, and ADHD. Hosted by Dr. Michael Lenz, the discussion covers topics like diagnosing autism in adults, the importance of accurate diagnosis, the connection between chronic pain and medical conditions, and the need for compassion within the medical profession. Dr. Greeter shares insights into her personal journey, from her path into psychiatry to identifying as autistic and ADHD later in life, highlighting the challenges and misconceptions around these conditions. The episode emphasizes the significance of diagnosis for understanding and self-compassion, challenges stereotypes about autism and ADHD, and advocates for patient-centric and informed medical practices.00:00 Introduction to the Conversation with Dr. Stacy Greeter00:06 Exploring Autism, ADHD, and Fibromyalgia with Dr. Greeter00:37 Dr. Michael Lenz: Background and Approach to Medicine01:14 Dr. Stacy Greeter's Journey into Psychiatry02:14 The Significance of an Accurate Diagnosis03:20 Navigating the Medical Field as Both Doctor and Patient19:55 Understanding and Diagnosing Autism in Adults24:27 The Impact of an Autism Diagnosis32:54 Concluding Thoughts and Encouragement Starter PackSupport the Show.A Fibromyalgia Starter Pack, which is a great companion to the book Conquering Your Fibromyalgia, is now available. Dr. Michael Lenz practices general pediatrics and internal medicine primary care, seeing patients from infants through adults. In addition, he also will see patients with fibromyalgia and related problems and patients interested in lifestyle medicine and clinical lipidology. To learn more, go to ConquringYourFibromyalgia.com. Remember that while Dr. Lenz is a medical doctor, he is not your doctor. All of your signs and symptoms should be discussed with your own physician. He aims to weave the best of conventional medicine with lifestyle medicine to help people with chronic health conditions live their best lives possible. Dr. Lenz hopes that the podcast, book, blog, and website serve as a trusted resource and starting point on your journey of learning to live better with fibromyalgia and related illnesses.

This is Growing Old
Understanding Patient Perspectives with Carrie Shaw

This is Growing Old

Play Episode Listen Later Mar 20, 2024 21:45


This week, we explore caregiver experiences with older adults facing neuropsychiatric symptoms (NPS). Joining us is Carrie Shaw, founder of Embodied Labs, a revolutionary medical training platform that prioritizes patient perspectives. Informed by her caregiving experiences, Carrie offers profound insights into the world of NPS patients through Embodied Labs' immersive tools.

MIB Agents OsteoBites
Patient perspectives on participating in research and clinical trials

MIB Agents OsteoBites

Play Episode Listen Later Mar 8, 2024 62:56


Jennifer Mack, MD, MPH from Dana-Farber Cancer Institute/Boston Children's and Harvard Medical School join us on OsteoBites to discuss best practices for engaging patients in research and clinical trials. Dr. Mack is also part of the PE-CGS Network (Participant Engagement and Cancer Genome Sequencing) Count Me In Research Center team and she will be discussing reasons that patients may or may not want to participate in research, ways to engage patients in designing and carrying out trials., and Count Me In as one model for engaging patients.Dr. Mack received her medical degree from Harvard Medical School in 1998. She subsequently completed her residency in Pediatrics and her fellowship in Pediatric Hematology Oncology at Boston Children's Hospital and the Dana-Farber Cancer Institute in Boston, MA. In 2005, Dr. Mack received a Master's Degree in Public Health from the Harvard School of Public Health. She is an attending physician at Dana-Farber Cancer Institute and Boston Children's Hospital, Director of the Center for Outcomes and Policy Research at Dana-Farber, Associate Chief of the Division of Population Sciences at Dana-Farber, Associate Chief for Pediatric Oncology Population Sciences at Dana-Farber/Boston Children's, and Faculty Vice President for the Office for Faculty Development, Professionalism, and Inclusion at Dana-Farber. She is also an Associate Professor of Pediatrics at Harvard Medical School. Her research interests are in parent-clinician and patient-clinician communication, health care equity and quality, and palliative care.

Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Rebecca Chopp: Living With Alzheimer's, Living With Joy | Patient Perspectives

Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers

Play Episode Listen Later Feb 27, 2024 35:13


Alzheimer's educator and activist Rebecca Chopp, Ph.D., joins Being Patient Live talks to discuss her upcoming book “Still Me: Accepting Alzheimer's Without Losing Yourself.” As she discussed in a previous live talk with us, she'll also be speaking about how she defies the stigma of Alzheimer's by living with joy. Before Chopp's diagnosis of Mild Cognitive Impairment and Alzheimer's in 2019, she was a widely published author, editor, and academic in the fields of education, philosophy, religion, and feminism. In particular, she served as the 18th and first female chancellor of the University of Denver. She has also served as president of Swarthmore College and Colgate University, as Provost at Emory University, and as Dean of Divinity at Yale University. Since her retirement, Chopp has devoted her days to living with joy. She enjoys painting classical portraits and abstracts, hiking in the Colorado mountains with Buhdy, her dog, and spending time with friends and family. She also co-founded the advocacy group Voices of Alzheimer's and serves as a board member of both the Alzheimer's Association's national organization and its Colorado Chapter. In addition to her writing and art, she is a frequent speaker on timely diagnosis, research for a cure, access and affordability of drugs, and lifestyle interventions for those with Alzheimer's. Watch this live talk to learn more about her upcoming book — and her guidance for living well with Alzheimer's. —---- If you loved watching this Live Talk, visit our website to find more of our Alzheimer's coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/ #Alzheimers #MildCognitiveImpairment #PatientPerspective #Books

Best of Oncology Podcast Series
Best Of ASTRO® 2024: DEI And Global Oncology Health Equity & Access To Care, Integrating Patient Perspectives – Dr. Amanda Caissie

Best of Oncology Podcast Series

Play Episode Listen Later Jan 31, 2024 18:56


Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Bill Sasse: An Insider's Account of the Alzheimer's Solanezumab Drug Trial | Patient Perspectives

Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers

Play Episode Listen Later Jan 30, 2024 23:24


The process of finding new treatments for Alzheimer's disease is one of trial and error — and every “failed” trial generates invaluable new data to help researchers and drug developers understand what works, what doesn't, and why. On Wednesday, January 24th, at 10:00 a.m. PT/1:00 p.m. ET, drug trial participant Bill Sasse, who was a participant in Eli Lilly's clinical trial of experimental monoclonal antibody drug solanezumab, joins Being Patient Live Talks to discuss his experience with the drug trial. In March of 2023, solanezumab ultimately failed to hit its benchmarks in slowing cognitive decline and the trial was discontinued. Sasse, whose father died of Alzheimer's, had the unique experience of participating in a clinical trial for a MAB drug without having any symptoms of cognitive decline. An army veteran, retired business owner, grandparent, and a native of Columbus, Indiana, he joined the trial after being inspired by a documentary about Glen Campbell promoting the trial, asking himself, “Why not, me?” With his wife as his trial partner, he participated in the solanezumab trial for eight years before it was announced that the clinical trial had failed. He has participated in panels with Eli Lilly on his experience with the trial. Watch the full video to learn more about the clinical trial experience with MAB drugs. _____ If you loved watching this Live Talk, visit our website to find more of our Alzheimer's coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/ #alzheimersresearch #solanezumab #clinicaltrials #alzheimers #dementia

OncLive® On Air
S8 Ep94: Expert and Patient Perspectives on AE Management With FGFR Inhibitors in Cholangiocarcinoma

OncLive® On Air

Play Episode Listen Later Jan 29, 2024 16:41


Goyal, Bishop, Kelley, and Kuhlman discuss ways to prepare patients with cholangiocarcinoma for FGFR inhibitor–related adverse effects.

Scope It Out with Dr. Tim Smith
Episode 84: Determinants of physician assessment of chronic rhinosinusitis disease control using EPOS 2020 criteria and the importance of incorporating patient perspectives of disease control

Scope It Out with Dr. Tim Smith

Play Episode Listen Later Jan 23, 2024 25:28


In this episode, host Dr. Amber Luong speaks with Dr. Ahmad Sedaghat. They discuss his recently published article: Determinants of physician assessment of chronic rhinosinusitis disease control using EPOS 2020 criteria and the importance of incorporating patient perspectives of disease control. Read the article in the International Forum of Allergy and Rhinology. Listen and subscribe […]

The EMJ Podcast: Insights For Healthcare Professionals
Bonus Episode: Patient Perspectives of Managing Type 2 Diabetes

The EMJ Podcast: Insights For Healthcare Professionals

Play Episode Listen Later Nov 27, 2023 15:46


In this final episode, the experts consider the patient perspective of managing type 2 diabetes and its complications while tailoring treatment approaches to individual characteristics. They also consider the patient's needs with a focus towards incretin/gut hormones and providing practical insights for healthcare practice.   This podcast is provided by EMJ and was supported by independent funding from Eli Lilly and Company, who did not influence the content of it. This educational activity is intended for an audience of non-US healthcare professionals.   Prof Michael Nauck Head of Clinical Research at the Diabetes Division Medical Department of St. Josef-Hospital, Ruhr-University in Bochum, Germany. Professor Nauck's research interests include the pivotal role of gastrointestinal peptide hormones, including incretins, in both the physiological and therapeutic regulation of metabolism, as well as in the pathophysiology of type 2 diabetes. His groundbreaking contributions have been significant in shaping the treatment landscape of type 2 diabetes. He has played a pivotal role in developing novel therapeutic agents based on anti-diabetic properties of the gut hormone including GLP-1 (or Glucagon-like peptide-1). His extensive scholarly output is underscored by numerous publications, and his outstanding scientific contributions have been honoured with several awards and accolades, including the Paul Langerhans Medal (2012) bestowed by the German Diabetes Association, and the Claude Bernard Medal from the European Association for the Study of Diabetes in 2022.   Dr. Priya Manjoo Clinical Assistant Professor in the Division of Endocrinology at the University of British Columbia in Canada.  Dr Manjoo is a diplomat of the American Board of Obesity Medicine and a Certified Specialist in Hypertension Medicine. She is also the director of the CardioMetabolic Collaborative Clinic located in Victoria, British Columbia, Canada and a member of the Victoria Lipid Clinic. She is a co-author of the Pharmacotherapy Section of the 2020 Canadian Adult Obesity Clinical Practice guidelines, as well as the 2022 chapter update and is an author of the 2021 Canadian Cardiovascular Society Guidelines for the Management of Dyslipidemia in Adults. Dr. Manjoo is a key opinion leader in the realms of diabetes, dyslipidaemia, and obesity management. Her invaluable contributions significantly contribute to advancing our understanding of these critical medical concepts.

JAMA Network
JAMA Dermatology : Patient Perspectives on Social Risk Screening and Documentation

JAMA Network

Play Episode Listen Later Oct 25, 2023 17:17


Interview with Aileen Y. Chang, MD, author of Patient Perspectives on Social Risk Screening and Documentation in a Dermatology Clinic. Hosted by Adewole S. Adamson, MD, MPP. Related Content: Patient Perspectives on Social Risk Screening and Documentation in a Dermatology Clinic

JAMA Dermatology Author Interviews: Covering research on the skin, its diseases, and their treatment
Patient Perspectives on Social Risk Screening and Documentation

JAMA Dermatology Author Interviews: Covering research on the skin, its diseases, and their treatment

Play Episode Listen Later Oct 25, 2023 17:17


Interview with Aileen Y. Chang, MD, author of Patient Perspectives on Social Risk Screening and Documentation in a Dermatology Clinic. Hosted by Adewole S. Adamson, MD, MPP. Related Content: Patient Perspectives on Social Risk Screening and Documentation in a Dermatology Clinic

CCO Infectious Disease Podcast
Patient Perspectives on Barriers and Facilitators of HIV Care

CCO Infectious Disease Podcast

Play Episode Listen Later Oct 18, 2023 32:24


In this episode, we hear from 2 people living with HIV: Melanie Reese from the United States and Marc Thompson from the United Kingdom. Both Melanie and Marc have done important work in the HIV field as patient advocates. Today, they will be discussing their experiences in accessing and navigating their own HIV care, with a focus on some of the barriers that can complicate and even block a person's journey across the HIV care continuum. In reviewing these challenges, Marc and Melanie share their insights on key strategies that can help to facilitate HIV care for patients, making the experience more straightforward and minimizing the impact that HIV has on their daily lives. Presenters:Melanie ReeseSubject Matter Expert, Older Women Living and Aging with HIV, HIV North America Health Resources and Services Administration HIV/AIDS BureauExecutive Director, Older Women Embracing LifeBoard Secretary, International Community of Women Living with HIVBaltimore, MarylandMarc ThompsonDirector, The Love TankCo-founder, PrepsterLondon, EnglandContent based on an online CME/CPE/CE program supported by an independent educational grant from Gilead Sciences, Inc. Link to full program:https://bit.ly/3Pas4zn

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast
Vera Bril, BSc, FRCPC, MD - Leveraging FcRn Modulation in Personalized Management of Generalized Myasthenia Gravis: Applying the Evidence, Tools, and Patient Perspectives to Achieve Treatment Goals

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast

Play Episode Listen Later Jun 1, 2023 57:08


Go online to PeerView.com/EZC860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. An international panel of experts discusses the data on clinical outcomes, safety, and efficacy of new and emerging therapies for the treatment of myasthenia gravis. The interdisciplinary discussion focuses on FcRn modulation and personalized treatment approaches, and includes an interview with a patient who discusses her life and treatment journey with myasthenia gravis. Upon completion of this activity, participants should be better able to: Integrate new and emerging gMG-targeted therapies into treatment plans as appropriate, based on an understanding of the data on clinical outcomes, safety, and effects on quality of life; Develop a management strategy that incorporates the patient's perspective in identifying treatment goals and choices; and Implement a safe, individualized administration protocol for the management of gMG that responds to clinical and patient-reported outcomes measures of treatment response and adverse events

PeerView Neuroscience & Psychiatry CME/CNE/CPE Audio Podcast
Vera Bril, BSc, FRCPC, MD - Leveraging FcRn Modulation in Personalized Management of Generalized Myasthenia Gravis: Applying the Evidence, Tools, and Patient Perspectives to Achieve Treatment Goals

PeerView Neuroscience & Psychiatry CME/CNE/CPE Audio Podcast

Play Episode Listen Later Jun 1, 2023 57:08


Go online to PeerView.com/EZC860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. An international panel of experts discusses the data on clinical outcomes, safety, and efficacy of new and emerging therapies for the treatment of myasthenia gravis. The interdisciplinary discussion focuses on FcRn modulation and personalized treatment approaches, and includes an interview with a patient who discusses her life and treatment journey with myasthenia gravis. Upon completion of this activity, participants should be better able to: Integrate new and emerging gMG-targeted therapies into treatment plans as appropriate, based on an understanding of the data on clinical outcomes, safety, and effects on quality of life; Develop a management strategy that incorporates the patient's perspective in identifying treatment goals and choices; and Implement a safe, individualized administration protocol for the management of gMG that responds to clinical and patient-reported outcomes measures of treatment response and adverse events

PeerView Neuroscience & Psychiatry CME/CNE/CPE Video Podcast
Vera Bril, BSc, FRCPC, MD - Leveraging FcRn Modulation in Personalized Management of Generalized Myasthenia Gravis: Applying the Evidence, Tools, and Patient Perspectives to Achieve Treatment Goals

PeerView Neuroscience & Psychiatry CME/CNE/CPE Video Podcast

Play Episode Listen Later Jun 1, 2023 57:03


Go online to PeerView.com/EZC860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. An international panel of experts discusses the data on clinical outcomes, safety, and efficacy of new and emerging therapies for the treatment of myasthenia gravis. The interdisciplinary discussion focuses on FcRn modulation and personalized treatment approaches, and includes an interview with a patient who discusses her life and treatment journey with myasthenia gravis. Upon completion of this activity, participants should be better able to: Integrate new and emerging gMG-targeted therapies into treatment plans as appropriate, based on an understanding of the data on clinical outcomes, safety, and effects on quality of life; Develop a management strategy that incorporates the patient's perspective in identifying treatment goals and choices; and Implement a safe, individualized administration protocol for the management of gMG that responds to clinical and patient-reported outcomes measures of treatment response and adverse events

PeerView Clinical Pharmacology CME/CNE/CPE Video
Vera Bril, BSc, FRCPC, MD - Leveraging FcRn Modulation in Personalized Management of Generalized Myasthenia Gravis: Applying the Evidence, Tools, and Patient Perspectives to Achieve Treatment Goals

PeerView Clinical Pharmacology CME/CNE/CPE Video

Play Episode Listen Later Jun 1, 2023 57:03


Go online to PeerView.com/EZC860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. An international panel of experts discusses the data on clinical outcomes, safety, and efficacy of new and emerging therapies for the treatment of myasthenia gravis. The interdisciplinary discussion focuses on FcRn modulation and personalized treatment approaches, and includes an interview with a patient who discusses her life and treatment journey with myasthenia gravis. Upon completion of this activity, participants should be better able to: Integrate new and emerging gMG-targeted therapies into treatment plans as appropriate, based on an understanding of the data on clinical outcomes, safety, and effects on quality of life; Develop a management strategy that incorporates the patient's perspective in identifying treatment goals and choices; and Implement a safe, individualized administration protocol for the management of gMG that responds to clinical and patient-reported outcomes measures of treatment response and adverse events

The Lupus Academy
Patient perspectives in lupus management

The Lupus Academy

Play Episode Listen Later May 26, 2023 58:20


In this episode, our host Dr Raquel Faria, will be speaking with Jeanette Andersen (Chair of Lupus Europe) and Professors Ricard Cervera and Maria Dall'Era from the Lupus Academy Steering Committee about patient perspectives in lupus management. You can visit the Lupus Europe website here: https://www.lupus-europe.org/ Disclaimer: ‘During Lupus Academy podcast episodes, participants may refer to off label use of medicines for patients with lupus. Lupus Academy does not make any recommendations about using a medicine outside the terms of its approved licence for use.'

Let’s Chit Chat - Wellness & Travel
Getting An MRI After A Car Accident

Let’s Chit Chat - Wellness & Travel

Play Episode Listen Later May 23, 2023 30:12 Transcription Available


Getting An MRI After A Car AccidentOn this episode of A Couple of Rad Techs Podcast, we dive into the importance of building rapport and having a positive attitude in the radiology industry. My guest Sri shares her experience of having a MRI and how self-talk and building a friendship with their MRI technologist helped her get through it. We also talk with Sri from Next Level Consulting, who offers tips on setting up successful live streaming shows. Consistency and mindset are recurring themes throughout the episode, with guests sharing their own experiences of overcoming fear and building successful communities. Listen in for valuable insights on healthcare, entrepreneurship, and personal growth.________________________Chaundria's Links ⤵️Listen & Review our Podacast https://link.chtbl.com/Bqq-BYj0Instagram https://instagram.com/radiologygurusOther resources https://linktr.ee/aradtechcoupleIf you want to support our show  https://www.paypal.com/paypalme/my/profile

Keeping Current
Early-Stage Resectable Non-Small Cell Lung Cancer: Sharing Patient Perspectives

Keeping Current

Play Episode Listen Later May 8, 2023 35:18


The complexity of treatment has increased dramatically; how effectively are you communicating with your patients?    Credit available for this activity expires: 05/04/2024 Earn Credit / Learning Objectives & Disclosures: https://www.medscape.org/viewarticle/991508?ecd=bdc_podcast_libsyn_mscpedu

PeerView Infectious Diseases CME/CNE/CPE Audio Podcast
Hyman Scott, MD, MPH, David Alain Wohl, MD - Exchanging PrEP Insights: Clinical Expert and Patient Perspectives on How to Become a Trusted HIV Prevention–Certified Provider

PeerView Infectious Diseases CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 26, 2023 34:15


Go online to PeerView.com/XFA860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, experts in HIV prevention and a patient advocate discuss the benefits of pre-exposure prophylaxis (PrEP) and the necessary tools for engaging patients in conversations about sexual health practices as well as strategies for improving the uptake of HIV prevention measures. Upon completion of this activity, participants should be better able to: Effectively engage clients in conversations about sexual health practices to assess HIV risk factors and support their ability to have healthy sex lives; Apply current evidence with individual client needs/preferences when integrating HIV prevention options (eg, PrEP, PEP, viral suppression, female condoms) into practice; Employ culturally competent educational and counseling strategies to improve the uptake of prevention measures among clients at increased risk for HIV infection; and Describe currently available and emerging tools that have been shown to significantly reduce the risk of HIV transmission or acquisition.

PeerView Family Medicine & General Practice CME/CNE/CPE Video Podcast
Hyman Scott, MD, MPH, David Alain Wohl, MD - Exchanging PrEP Insights: Clinical Expert and Patient Perspectives on How to Become a Trusted HIV Prevention–Certified Provider

PeerView Family Medicine & General Practice CME/CNE/CPE Video Podcast

Play Episode Listen Later Apr 26, 2023 34:08


Go online to PeerView.com/XFA860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, experts in HIV prevention and a patient advocate discuss the benefits of pre-exposure prophylaxis (PrEP) and the necessary tools for engaging patients in conversations about sexual health practices as well as strategies for improving the uptake of HIV prevention measures. Upon completion of this activity, participants should be better able to: Effectively engage clients in conversations about sexual health practices to assess HIV risk factors and support their ability to have healthy sex lives; Apply current evidence with individual client needs/preferences when integrating HIV prevention options (eg, PrEP, PEP, viral suppression, female condoms) into practice; Employ culturally competent educational and counseling strategies to improve the uptake of prevention measures among clients at increased risk for HIV infection; and Describe currently available and emerging tools that have been shown to significantly reduce the risk of HIV transmission or acquisition.

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast
Hyman Scott, MD, MPH, David Alain Wohl, MD - Exchanging PrEP Insights: Clinical Expert and Patient Perspectives on How to Become a Trusted HIV Prevention–Certified Provider

PeerView Clinical Pharmacology CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 26, 2023 34:15


Go online to PeerView.com/XFA860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, experts in HIV prevention and a patient advocate discuss the benefits of pre-exposure prophylaxis (PrEP) and the necessary tools for engaging patients in conversations about sexual health practices as well as strategies for improving the uptake of HIV prevention measures. Upon completion of this activity, participants should be better able to: Effectively engage clients in conversations about sexual health practices to assess HIV risk factors and support their ability to have healthy sex lives; Apply current evidence with individual client needs/preferences when integrating HIV prevention options (eg, PrEP, PEP, viral suppression, female condoms) into practice; Employ culturally competent educational and counseling strategies to improve the uptake of prevention measures among clients at increased risk for HIV infection; and Describe currently available and emerging tools that have been shown to significantly reduce the risk of HIV transmission or acquisition.

PeerView Internal Medicine CME/CNE/CPE Video Podcast
Hyman Scott, MD, MPH, David Alain Wohl, MD - Exchanging PrEP Insights: Clinical Expert and Patient Perspectives on How to Become a Trusted HIV Prevention–Certified Provider

PeerView Internal Medicine CME/CNE/CPE Video Podcast

Play Episode Listen Later Apr 26, 2023 34:08


Go online to PeerView.com/XFA860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, experts in HIV prevention and a patient advocate discuss the benefits of pre-exposure prophylaxis (PrEP) and the necessary tools for engaging patients in conversations about sexual health practices as well as strategies for improving the uptake of HIV prevention measures. Upon completion of this activity, participants should be better able to: Effectively engage clients in conversations about sexual health practices to assess HIV risk factors and support their ability to have healthy sex lives; Apply current evidence with individual client needs/preferences when integrating HIV prevention options (eg, PrEP, PEP, viral suppression, female condoms) into practice; Employ culturally competent educational and counseling strategies to improve the uptake of prevention measures among clients at increased risk for HIV infection; and Describe currently available and emerging tools that have been shown to significantly reduce the risk of HIV transmission or acquisition.

PeerView Internal Medicine CME/CNE/CPE Audio Podcast
Hyman Scott, MD, MPH, David Alain Wohl, MD - Exchanging PrEP Insights: Clinical Expert and Patient Perspectives on How to Become a Trusted HIV Prevention–Certified Provider

PeerView Internal Medicine CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 26, 2023 34:15


Go online to PeerView.com/XFA860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, experts in HIV prevention and a patient advocate discuss the benefits of pre-exposure prophylaxis (PrEP) and the necessary tools for engaging patients in conversations about sexual health practices as well as strategies for improving the uptake of HIV prevention measures. Upon completion of this activity, participants should be better able to: Effectively engage clients in conversations about sexual health practices to assess HIV risk factors and support their ability to have healthy sex lives; Apply current evidence with individual client needs/preferences when integrating HIV prevention options (eg, PrEP, PEP, viral suppression, female condoms) into practice; Employ culturally competent educational and counseling strategies to improve the uptake of prevention measures among clients at increased risk for HIV infection; and Describe currently available and emerging tools that have been shown to significantly reduce the risk of HIV transmission or acquisition.

PeerView Family Medicine & General Practice CME/CNE/CPE Audio Podcast
Hyman Scott, MD, MPH, David Alain Wohl, MD - Exchanging PrEP Insights: Clinical Expert and Patient Perspectives on How to Become a Trusted HIV Prevention–Certified Provider

PeerView Family Medicine & General Practice CME/CNE/CPE Audio Podcast

Play Episode Listen Later Apr 26, 2023 34:15


Go online to PeerView.com/XFA860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. In this activity, experts in HIV prevention and a patient advocate discuss the benefits of pre-exposure prophylaxis (PrEP) and the necessary tools for engaging patients in conversations about sexual health practices as well as strategies for improving the uptake of HIV prevention measures. Upon completion of this activity, participants should be better able to: Effectively engage clients in conversations about sexual health practices to assess HIV risk factors and support their ability to have healthy sex lives; Apply current evidence with individual client needs/preferences when integrating HIV prevention options (eg, PrEP, PEP, viral suppression, female condoms) into practice; Employ culturally competent educational and counseling strategies to improve the uptake of prevention measures among clients at increased risk for HIV infection; and Describe currently available and emerging tools that have been shown to significantly reduce the risk of HIV transmission or acquisition.

Butts & Guts: A Cleveland Clinic Digestive Health Podcast
Patient Perspectives: Sleeve Gastrectomy for a Heart Transplant

Butts & Guts: A Cleveland Clinic Digestive Health Podcast

Play Episode Listen Later Apr 11, 2023 22:01


The Patient Perspectives series returns to Butts and Guts, this time highlighting gastric sleeve surgery. Paul, a Cleveland Clinic patient, joins this episode to share his story about traveling to Ohio for heart care and having a sleeve gastrectomy to qualify for a heart transplant. Two important caregivers in Paul's journey also join this discussion: Karen Schulz, CNS, and Diane Harris, a patient navigator. Listen for a glimpse into the specialized care offered at the Bariatric and Metabolic Institute at Cleveland Clinic.

Axiom Catalyst
Sickle Cell Disease: John James sharing patient perspectives

Axiom Catalyst

Play Episode Listen Later Apr 11, 2023 31:11


While significant therapeutic advances are underway for inherited blood disorders such as sickle cell disease, hemophilia and β-thalassemia, key challenges remain for the commercialization of these therapies, as well as disparities in access to these treatments and level of care received by patients. In this episode of Axiom Catalyst, we invited John James, CEO of Sickle Cell Society to discuss the impact of sickle celldisease on day-to-day lives of patients living in the UK, as well as current challenges in their clinical journey. We also explore the outreach work done by the Sickle Cell Society including key local initiatives such as the Hackney engagement project, and the translatory impact of their patient support work.

MIB Agents OsteoBites
osTEAo - Navigating Campus: Limb-Salvage and Amputation Patient Perspectives

MIB Agents OsteoBites

Play Episode Listen Later Mar 16, 2023 54:48


OsteoWarriors Camille and Mia are joined by OsteoWarriors Daniel and Kara in this episode on navigating life and campus with limb salvage surgery and amputation, which are the primary treatment options to remove an osteosarcoma tumor. Listen in as they discuss why they chose limb salvage surgery or amputation and how they manage getting around school, and share challenges and horror stories they've experienced which are sure to make you both grimace and laugh. --- Save the Date and mark your calendars for FACTOR 2023 - June 22-24 in Atlanta GA. Registration is now live! Go to MIBAgents.org to register. --- What We Do at MIB Agents: PROGRAMS: ✨ End-of-Life MISSIONS ✨ Gamer Agents ✨ Agent Writers ✨ Prayer Agents ✨ Healing Hearts - Bereaved Parent Support ✨ Ambassador Agents - Peer Support ✨ Warrior Mail ✨ Young Adult Survivorship Support Group ✨ EDUCATION for physicians, researchers and families: ✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma ✨ MIB Book: Osteosarcoma: From our Families to Yours ✨ RESEARCH: Annual MIB FACTOR Research Conference ✨ Funding $100,000 annually for OS research ✨ MIB Testing & Research Directory ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments. Help us MakeItBetter.

OncLive® On Air
S7 Ep55: Expert and Patient Perspectives on Comprehensive Multiple Myeloma Treatment

OncLive® On Air

Play Episode Listen Later Dec 22, 2022 20:51


Dr Kumar, Dr Patel, Falbo, and Ahlstrom highlight the importance of community-based discussions regarding adverse effects in multiple myeloma, the benefits of considering the whole treatment course, and subgroup analyses from the MAIA trial.

Research To Practice | Oncology Videos
Multiple Myeloma | BCMA-Directed Therapy in Multiple Myeloma: Expert Opinions and Patient Perspectives — Part 2

Research To Practice | Oncology Videos

Play Episode Listen Later Dec 15, 2022 61:10


Featuring perspectives from Dr S Vincent Rajkumar, including the following topics: Introduction: Requiem for Belantamab Mafodotin? Dawn of a New Era (0:00) Case: A man in his early 70s with multiregimen-refractory multiple myeloma (MM) receives idecabtagene vicleucel with Grade 1 cytokine release syndrome and persistent cytopenias — Jesús G Berdeja, MD (16:12) Case: A man in his mid 60s with multiregimen-refractory MM receives idecabtagene vicleucel with a 20-month response — Dr Berdeja (25:19) Case: A man in his late 50s with multiregimen-refractory MM received idecabtagene vicleucel in 2020 and is currently in complete remission — Natalie S Callander, MD (31:11) Case: A man in his early 60s with multiregimen-refractory MM receives the novel bispecific antibody WVT078 on a clinical trial — Dr Callander (41:02) Case: A man in his mid 70s with multiregimen-refractory MM receives teclistamab on a clinical trial — Dr Berdeja (51:21) CME information and select publications

Hematologic Oncology Update
BCMA-Directed Therapy in Multiple Myeloma: Expert Opinions and Patient Perspectives — Part 2 of a 2-Part Series

Hematologic Oncology Update

Play Episode Listen Later Dec 15, 2022 61:09


Featuring a discussion on the treatment of multiple myeloma with Dr Vincent Rajkumar, moderated by Dr Neil Love.

Practice Point Communications
Patient Perspectives in HIV: A CE Podcast Series - Episode 3: Management Challenges

Practice Point Communications

Play Episode Listen Later Dec 5, 2022 10:51


This educational podcast will review common patient considerations in the treatment and management of HIV. Launch Date: December 13, 2022 Release Date: December 13, 2022 Expiration Date: November 30, 2023ACTIVITY DESCRIPTIONIn this podcast, Dr. Samantha Hill and a patient will discuss management challenges. FACULTY BIOSamantha Hill, MD, MPH is the Director of Diversity, Equity, and Inclusion for Graduate Medical Education and Assistant Professor Department of Pediatrics, Division of Adolescent Medicine at University of Alabama at Birmingham.This podcast provides accredited continuing education credits. To qualify for credit, please read all accreditation information at the provided link below prior to listening to this episode.  https://www.practicepointcme.com/CMEHome/patient-perspectives-in-hiv-a-ce-podcast-series-39 

Hematologic Oncology Update
BCMA-Directed Therapy in Multiple Myeloma: Expert Opinions and Patient Perspectives — Part 1 of a 2-Part Series

Hematologic Oncology Update

Play Episode Listen Later Nov 12, 2022 61:01


Featuring a discussion on BCMA-directed therapy in multiple myeloma with Dr Elizabeth O'Donnell, moderated by Dr Neil Love.

Research To Practice | Oncology Videos
Multiple Myeloma| BCMA-Directed Therapy in Multiple Myeloma: Expert Opinions and Patient Perspectives — Part 1

Research To Practice | Oncology Videos

Play Episode Listen Later Nov 11, 2022 61:02


Featuring perspectives from Dr Elizabeth O'Donnell, including the following topics: Introduction: Quality of Life in Multiple Myeloma (0:00) CAR (Chimeric Antigen Receptor) T-Cell Therapy (9:29) Bispecific Antibodies (33:08) Belantamab Mafodotin (43:11) CME information and select publications

Practice Point Communications
Patient Perspectives in HIV: A CE Podcast Series - Episode 2: Committing to PrEP

Practice Point Communications

Play Episode Listen Later Sep 8, 2022 12:11


This educational podcast will review common patient considerations in the treatment and management of HIV.Launch Date: September 8, 2022 Release Date: September 1, 2022 Expiration Date: August 31, 2023ACTIVITY DESCRIPTIONIn this podcast, Dr. Richard Elion and a patient will discuss committing to PrEP. FACULTY BIORichard Elion, MD, ABFP is a professor of medicine and George Washington University School of Medicine. This podcast provides accredited continuing education credits. To qualify for credit, please read all accreditation information at the provided link below prior to listening to this episode.  https://www.practicepointcme.com/CMEHome/patient-perspectives-in-hiv-a-ce-podcast-series-39 

Rheumnow Podcast
TNR- What Patients Say about PsA

Rheumnow Podcast

Play Episode Listen Later Apr 6, 2022 64:11


Tuesday Nite Rheumatology, held on April 5th, 2022 features a Patient Perspectives panel discussion, hosted by Dr. Jack Cush. PsA Panelists included: - Tena Brown - Christine Lindsay - Ashley Krivohlavek RheumNow's PsA Campaign with enhanced coverage of Psoriatic Disease is sponsored by Janssen. All content is chosen by RheumNow + its faculty.

Rheumnow Podcast
TNR- What Patients Say About PsA

Rheumnow Podcast

Play Episode Listen Later Apr 6, 2022 64:11


Tuesday Nite Rheumatology, held on April 5th, 2022 features a Patient Perspectives panel discussion, hosted by Dr. Jack Cush. PsA Panelists included: - Tena Brown - Christine Lindsay - Ashley Krivohlavek RheumNow's PsA Campaign with enhanced coverage of Psoriatic Disease is sponsored by Janssen. All content is chosen by RheumNow + its faculty.