Podcasts about previvor

Driven by a family history of cancer and her expertise as a nurse practitioner, Robin Centner was proactive when she learned she carried a gene tied to colon cancer.  She called upon a genetic counselor and underwent genetic testing.  She says this screening saved her life, as from it she learned the gene is predisposed to colon cancer.  Thanks to annual colonoscopies, if she is diagnosed with colon cancer, she will be positioned for early detection, maximizing her chance of survivorship.  This is her story of being a colon cancer previvor.

In this episode we discuss a research study that focuses on Black women who tested positive for a pathogenic variant associated with an increased risk for breast cancer. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website. Please note that the terminology used refers to women to reflect the language used in the paper, and all genders can have a risk to develop breast cancer. Segment 1: “A qualitative study of Black breast cancer previvors' and survivors' experiences after positive genetic testing” Malika Sud (she/her) is a genetic counselor who specializes in fetal genetics and rare disease diagnosis. She works at the Manton Center at Boston Children's Hospital, where her projects focus on discovering genetic causes of rare disease, improving access to genetic testing/counseling, and support around perinatal loss. She also cares for people with high-risk pregnancies at the Maternal Fetal Care Center at Boston Children's Hospital. Malika's work is informed by her community activism and lived experience as a woman of color - she is a longtime advocate for reproductive justice and strives to center marginalized voices healthcare and research. She teaches at the Boston University Genetic Counseling Program and serves on the NSGC J.E.D.I. Stewardship Committee in an effort to make the genetic counseling field more inclusive for patients and colleagues. Malika's Twitter handle is @malikasud   Erika Stallings is an attorney and writer based in Jersey City, NJ. In 2014 she learned that she carried a BRCA2 mutation and underwent a preventative mastectomy that same year. Since undergoing genetic counseling and testing she has worked to raise awareness of hereditary cancer with a specific focus on raising awareness in minority communities. Her writing about her experience with hereditary cancer as well as her work on health inequities has been published in NPR, O Magazine, The Cut, Jezebel and The New York Times. She is active on social media at the handle quidditch424 on X."  In This Episode We Discuss: - The origins of the study and the reasoning behind choosing this specific topic. - Erika's involvement as a patient advocate and how the team's diverse backgrounds shaped the research approach. - The five key themes uncovered in the study, with relevant participant quotes shared. - Insights on how healthcare providers can improve support for Black women with genetic results indicating higher breast cancer risk. - Discussion of the study's potential impact on future research and changes in clinical practice.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson, and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

Joining me for a second time on this podcast, Kristina and I reconnect to have an important conversation about breast cancer awareness and early detection. We discuss her early diagnosis of the BRCA1 gene mutation and the steps she took knowing her chances of getting breast and/or ovarian cancer. Kristina also shares how and when other women can be tested. When we spoke the last time she was on the podcast, she shared the story along with her two sisters (one of which was also diagnosed with the gene mutation). The 3 have bonded together to not only bring awareness but to support one another through their surgeries.   One of the things they've bonded over is running marathons!  They also support and run along side eachother and have just returned from running Berlin! Through this journey Kristina says she has found her voice, thinking at one time that it was possible that cancer might end her life...instead she is out educating, supporting and raising funds for research!     Mom Runs Marathon to Cope With Double Mastectomy, Hysterectomy (today.com)   2024 Run Any Race: Mrs. Kristina Coccoluto's Fundraising Page - Run for Dana-Farber (jimmyfund.org)  

Welcome to this episode of the Creating Good podcast, brought to you by Rogue Creatives, designed to connect with and learn from people in the nonprofit sector. I'm your host, Matt Barnes. In this episode, I'm joined by Allyn Rose, the founder and CEO of The Previvor Foundation. Join us as we explore preventative health, women's empowerment, and the importance of community support. So sit back, relax, and let's jump right into it.

Louisa ist Trägerin der BRCA1 Mutation. 2017 ist ihre Schwester erkrankt und im Zuge dessen wurde eine genetische Veranlagung in der Familie festgestellt. Über den Weg und ihre Erfahrungen mit der Entscheidung, sich prophylaktisch die Brustdrüsen entfernen und einen Wiederaufbau mit Eigengewebe machen zu lassen, spricht Louisa mit Sarah in dieser Podcastfolge. Es wird sehr deutlich, wie wichtig das Wissen um eine krebsbegünstigende Mutation ist, um gut informiert die für sich richtigen Entscheidungen zu treffen. Dieser Podcast dient nur zu Informationszwecken und ist nicht als Ersatz für eine professionelle medizinische Beratung gedacht. Die geäußerten Ansichten, Gedanken und Meinungen sind jeweils die der Moderatorin und den jeweiligen Gesprächspartner: innen.

On today’s episode, I am speaking with Gila Pfeffer. Gila is a 15-year breast cancer…

In 2014, Liz lost her sister to an aggressive breast cancer and since then, several family members have also been diagnosed with breast cancer. With a strong family history, Liz has become a dedicated Health Seeker, navigating her path in hopes of finding a different outcome. Learning about the book Radical Remission, Liz found that she naturally adopted the healing factors into her life while grieving the loss her sister. Today, Liz is one of the Co-directors of the Radical Remission Project and Co-host of this podcast. She believes that the lifestyle changes in Radical Remission and Radical Hope have played a large role in her health and healing and is passionate to share this roadmap with others on a healing journey. Connect with Liz in her private practice, the Health Navigators @ www.healthnavs.com  or on Social Media: Instagram @healthnavigators Facebook @healthnavigators and YouTube @healthnavigatorsofficial __________ To learn more about the 10 Radical Remission Healing Factors, connect with a certified RR coach or join a virtual or in-person workshop visit www.radicalremission.com. To watch Episode 1 of the Radical Remission Docuseries for free, visit our YouTube channel here. To purchase the full 10-epidsode Docuseries visit Hay House Online Learning. Click here, to learn more about health coaching with Liz or Karla.  Follow us on Social Media: Facebook , Instagram, YouTube

Today we welcome Kristina Coccoluto to the podcast for a Wellness Wednesday episode! Kristina is a “previvor” born with the BRCA1 mutation, leaving her with an 87% lifetime risk of being diagnosed with breast cancer and a 60% risk of being diagnosed with ovarian cancer. She took her circumstances into her own hands and had a risk-reducing double mastectomy. Kristina has been raising funds and awareness for the cancer community for over a decade, and has used her story to spread awareness and become a motivational speaker to empower others. Kristina is an absolute powerhouse, and ran the Boston marathon 28 weeks after having her second surgery, a complete hysterectomy. This conversation is an absolute inspiration. Enjoy! Follow Kristina on Instagram: https://www.instagram.com/kristinacoccoluto/?hl=enWork with us here: https://www.businessmusclepodcast.com/You can follow us on Instagram @businessmusclepodcast, @elisecaira and @dr.ariel.dpt. Follow us on facebook: https://www.facebook.com/profile.php?id=100095609733486Get your FREE Business Starter Checklist: https://www.businessmusclepodcast.com/freechecklistFIXXED: https://www.fixxedstudios.com/Sweat Fixx: https://www.sweatfixx.com/

Meet my dear friend Tracy Posner, an amazing previvor and founder of BRCA Strong. This unique non-profit organization offers education, information, support and advocacy for women who are uninsured or under-insured, by women who truly care. BRCA Strong is one-stop shopping! From pre-mastectomy care packages, gynecological care packages and post-mastectomy garments to prosthetics and other treatment necessities — all of this is provided at zero cost to the recipient! Tune in to this very special episode to hear Tracy's story, and learn how you or someone you love can gain access to her beautiful and free resources.   

Jacqueline is joined by Angela, a BRCA previvor and mom of twins. In this episode, Angela shares her journey to motherhood and educates listeners on the BRCA gene mutation. Take a listen to how she took control of her health, took preventative measures from passing this gene down to further generations, and how that paved the way to the family she has today.In this episode...What is the BRCA gene?The effect of the BRCA gene mutation on your healthPreventative double mastectomyIVF and genetic testing of embryosEgg donationMotherhood post fertility treatmentsStruggling to conceive? Go from feeling stressed and worried to CALM and CONFIDENT with this *FREE* Month-by-Month Roadmap to Your Fertility Success!•  Connect with Angela on Instagram•  Leave a review for the podcast•  Join the Motherhood Intended Community•  Follow @motherhood_intended on Instagram•  Reach out to Jacqueline via e-mail: hello@motherhoodintended.comIf you're interested in helping give the absolute greatest gift to deserving parents, learn more about becoming a surrogate (and earn up to $650 just for taking the first few simple steps!): share.conceiveabilities.com/hello12BRCA information found here.Support the showLoving the podcast? Then we would love your support with the production of the show! With the help of our audience, the podcast will be able to bring you the best content, most interesting guests, and helpful resources. Consider skipping your coffee run today and instead show some love here: https://www.buymeacoffee.com/motherhoodintended

Send us a Text Message.Have you ever thought about the power of intuition? Kim Robinson, a breast cancer survivor, did. Kim's lemon-sized tumor could be FELT but NOT SEEN on imaging-3D mammography or Breast MRI. Not only did she feel something was off before her diagnosis, but she also found her voice to advocate for herself w/ her insurance company, leading to her early detection of cancer. Kim shared her journey from being diagnosed w/ stage 1A breast cancer in 2016 to undergoing double mastectomy w/ expanders in 2018 and implants in 2019. She ultimately had them explanted and opted for the DIEP Flap surgery at Center For Restorative Breast Surgery Vanessa Vance, a "Previvor", and now an advocate for Previvors,  joins us to share her proactive steps to reduce her own risk of cancer through a preventative mastectomy and breast reconstruction. She was better able to make those decisions through her serendipitous friendship with Kim. Throughout the episode, we delve into the importance of self-advocacy and patient rights. We discussed the role of social media in rallying patient advocates and the medical community to keep the S codes in place after the 2019 changes that would make it considerably more difficult for many women to be able to have the DIEP Flap surgery. Kim and Vanessa share their experiences w/ genetic testing and the ways to navigate the healthcare system, as well as their emotional journey in coming to terms w/ their body image post-surgery and the importance of supportive communities in helping them through their journeys. Vanessa recommends following Dr. Elizabeth Potter's IG account and her nonprofit Community Breast Surgery Alliance for more resources on advocacy. Kim suggests joining a local breast cancer group or the ABC program at the YMCA. This episode is a treasure trove of resources, experiences, and advice for those on a breast cancer journey and those who are Previvors wanting to know more about how they can take steps to reduce to risk of breast cancer.Join Jamie Vaughn! Contact:EMail Kim Robinson Vanessa IG Vanessa LinkedIn Resources: Center For Restorative Breast Su Are you loving the Test Those Breasts! Podcast? You can show your support by donating to the Test Those Breasts Nonprofit @ https://testthosebreasts.org/donate/ Where to find Jamie:Instagram LinkedIn TikTok Test Those Breasts Facebook Group LinkTree Jamie Vaughn in the News! Thanks for listening! I would appreciate your rating and review where you listen to podcasts!I am not a doctor and not all information in this podcast comes from qualified healthcare providers, therefore may not constitute medical advice. For personalized medical advice, you should reach out to one of the qualified healthcare providers interviewed on this podcast and/or seek medical advice from your own providers .

This week, we're sharing voice messages from four Previvors in the community. You'll hear their stories and the incredible advice they have for others who have recently discovered their gene mutations.We are still looking for voice memo submissions for our next mini-episode airing next Friday for anyone else who would like to participate. We want to know "What Is It Like To Be A Survivor? What Advice Would You Give To Those Who Have Been Diagnosed?" Visit the link below to submit a voice memo:https://www.speakpipe.com/msg/s/321705/4/pux8cgcj9s5xqc4mIf you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at tyftspodcast@gmail.comPlease consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners. Every donation will get a shoutout on our podcast and a free TYFTS sticker..www.buymeacoffee.com/tyftspodcast

This week, We share voice messages from our listeners who gave their tips and advice to individuals and/or corporations who are considering donating to breast cancer awareness. We are still looking for voice memo submissions for our next mini episode airing next friday.This mini episode will feature the Previvors in the community.If you are a Previvor and want to participate, we want to know “What is it like to be a Previvor? What advice would you give to those who just found out about their gene mutation?”Visit the link below to submit your voice memo:https://www.speakpipe.com/msg/s/321705/3/4yt2v3d8ktysytqtIf you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at tyftspodcast@gmail.comPlease consider donating to our “Buy Me A Coffee” page. Your generous support will greatly assist us in continuing to produce quality content for our listeners.Every donation will get a shoutout on our podcast, as well as a free TYFTS sticker..www.buymeacoffee.com/tyftspodcast

On today’s episode, I am speaking with Betty Dicker. Betty was diagnosed with a BRCA2…

Joanne Ameruoso, woman from Merrick, NY who lost three family members to breast cancer, shares the proactive steps she's taken to fight breast cancer on Newsline with Brigitte Quinn.

Rosalina shares the impact she's facing from the breast reconstruction, including scarring, healing concerns, and the need for revisions. She opens up about the uncertainties during her breast reconstruction process, her relationship with her plastic surgeon, and the struggle to find closure in her reconstruction journey.Shauna shares her decision to pursue a second revision, focusing on achieving symmetry and considering fat grafting on her non-cancer side. She also touches on contemplating the LAT tissue flap option and the factors that influenced her decision.Episode Timestamps:[00:01:27] Let's Talk Foobs[00:04:14] Shauna's Decision on Revision Surgery[00:09:53] Nipple Tattoos: Yay or Nay[00:11:44] Rosalina's Reconstruction Journey[00:19:55] Feeling Uncertain About Your Plastic Surgeon[00:25:49] I am Wonderwoman[00:30:27] Surgery Surprises[00:32:22] In Pursuit of a Female Doctor[00:33:52] Tape the Titties And It's Still Not Right[00:41:20] Never Wanting a Boob Job[00:44:57] Sunscreen For Protection Click here to leave us a voicemail about what is it like to be a Previvor?If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at tyftspodcast@gmail.comVisit our website and check out our resources: https://tyftspodcast.com/If you want to submit a quote about your breast cancer journey, submit one here: Submit A Quote

In this episode, I interviews Allyn Rose, a breast cancer advocate, motivational speaker, IVF mom and advocate, author and content creator.  Allyn's story and how she has approached the good and bad in her life are a testament to the power of conviction and self-belief. In this conversation, we talked about Allyn's journey from being a contestant on a beauty peagent to making this life altering decision of removing her breasts and all the challenges that came along. We learn from Allyn how to maintain a healthy perspective around your appearance especially if you don't quite like what you see in the mirror and how to not let it dictate any of the choices you make in life. We also talk about how to protect yourself against external negativity as you share pieces of yourself on the internet, creating online personas and not letting any of it overshadow the work that you do, and so much more. As a 24-year-old Miss America contestant, Allyn made headlines across the globe with the controversial decision to undergo a preventative double mastectomy after losing her mother, grandmother and great aunt to breast cancer.  Determined to encourage other women to know that their scars are beautiful, Allyn boldly became the first woman with a mastectomy to model for Sports Illustrated Swimsuit. Allyn is the founder of The Previvor, a 501(c)(3) non profit women's health platform, which serves as a resource for women undergoing mastectomy. She is also the creator of the #SelfExamGram, a social media movement teaching women the proper way to perform a monthly self breast exam. Allyn continues to work as an advocate and contributor on several national media outlets.  Shownotes- 01:20 Intro 3:00 From pageantry to advocacy, Allyn's Journey and her central mission 5:29 Deciding to get a preventative mastectomy and the challenges that followed 9:22 How to not let your insecurities around your looks get in the way of your growth 17:50 Diving into the world of Advocacy and its emotional cost 23:00 Sharing Your Life Online 26:34 Handling negativity and external judgement 36:30 Self-Acceptance 41:00 Authenticity vs Brand consciousness 46:10 Chaotic Productivity 48:50 The one idea to incept in every child's mind   Links and Resources - Allyn's Website - https://allynrose.com/ Allyn's Instagram - https://www.instagram.com/allynrose/ The Previvor - https://theprevivor.org/ For more, visit - https://www.kratimehra.com/experible/ To read the transcript, visit - https://www.kratimehra.com/self-acceptance-conviction-intent-authenticity/ Watch the episode video  - https://www.youtube.com/@kratimehra/ Follow me on Instagram - https://www.instagram.com/mehra_krati To share your feedback or to add to the conversation, leave a review/comment, or share it on an email - support@kratimehra.com

Join host Melissa Berry and she sits down with one of her dear friends Kristen Carbone, breast cancer previvor and founder of Brilliantly. Learn all about Kristen's amazing, "Brilliantly Warm" invention, how she recently scored coverage about her brand in Goop, and the why behind her mission.

If you want to keep listening, follow and subscribe to Everyone Hates Healthcare, please CLICK HERE This woman built a platform for those needing support while navigating breast health decisions. In this episode of Everyone Hates Healthcare, Michael Swartz, our host, is glad to have Allyn Rose, breast cancer advocate and founder of The Previvor. Allyn made headlines with the controversial decision to undergo a double mastectomy after losing her mother to breast cancer, becoming the representative for preventive surgery. After having the procedure with successful results, people asked many different questions about it. Allyn realized there was nowhere on the Internet she could direct these people to informed answers, so she created a platform called The Previvor to fill this void. In it, she has compilated information and resources for anyone who's affected by breast cancer in any scenario. She also discusses other preventive measures like self-exams and the importance of finding the right doctor to guide you. Tune in to listen to Allyn's inspiring story and learn how to take action to prevent breast cancer! Click this link to the show notes, transcript, and resources: outcomesrocket.health

This woman built a platform for those needing support while navigating breast health decisions. In this episode of Everyone Hates Healthcare, Michael Swartz, our host, is glad to have Allyn Rose, breast cancer advocate and founder of The Previvor. Allyn made headlines with the controversial decision to undergo a double mastectomy after losing her mother to breast cancer, becoming the representative for preventive surgery. After having the procedure with successful results, people asked many different questions about it. Allyn realized there was nowhere on the Internet she could direct these people to informed answers, so she created a platform called The Previvor to fill this void. In it, she has compilated information and resources for anyone who's affected by breast cancer in any scenario. She also discusses other preventive measures like self-exams and the importance of finding the right doctor to guide you. Tune in to listen to Allyn's inspiring story and learn how to take action to prevent breast cancer! Click this link to the show notes, transcript, and resources: outcomesrocket.health

Emily Dille shares what a previvor is and her breast cancer journey.   --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/alesha-shaw/support

Katie (Medina) Doiron and I played softball together at Florida so it was SO much fun to catch up with her. But even more so, I was so impacted by what she shared. Katie is a PREVIVOR, and you will learn more about that in the episode, but wow, the life she has chosen to live is so inspiring! She shares so much of why she chose the Previvor journey as well as why she loves coaching and empowering others! Follow Katie:Instagram If you want to learn more about what it means to be a Previvor, the BRCA gene, or anything else that Katie may have discussed regarding her journey in this space, please check out these resources that she put together. I'm so grateful that she shared information and I'm hopeful that it may be just what someone might need to take their next step in their journey or to help someone they care about. You can simply click on any of the topics below and it will take you to a link provided by Katie.Preventative MeasuresMastectomyBRCAProphylactic mastectomy for the prevention of breast cancer StudyThe Previvor Blog

Karen Malkin Lazarovitz is a "Previvor" Cancer advocate, the creator of EMPOWERink and all around self-proclaimed badass! She joins the fellas this week to discuss why she decided to have a double mastectomy and hysterectomy even though she did not have breast or ovarian cancer. She also shows the fellas her new boobs and explains the process of getting ink done over mastectomy scars! Applications for this year's EMPOWERink open on July 25th! You can find the application here on that date: https://form.jotform.com/221036076499258 Join the post-episode conversation over on Discord! https://discord.gg/expeUDN

Karen Malkin Lazarovitz is a "Previvor" Cancer advocate, the creator of EMPOWERink and all around self-proclaimed badass! She joins the fellas this week to discuss why she decided to have a double mastectomy and hysterectomy even though she did not have breast or ovarian cancer. She also shows the fellas her new boobs and explains the process of getting ink done over mastectomy scars! Applications for this year's EMPOWERink open on July 25th! You can find the application here on that date: https://form.jotform.com/221036076499258 Join the post-episode conversation over on Discord! https://discord.gg/expeUDN

"I know how different my experience is. I am not facing potentially debilitating treatment(s) or the fear of death. Still, I am experiencing a physical transformation, a redefining of my feminine self, yet I do not feel as if I have the 'right' to be scared, saddened or supported. This is a "me" problem but raises the broad need for inclusivity, acceptance, and support in general and by health care professionals. I no longer have breasts. Pathology confirmed for me that this was the right choice — no cancer yet. Findings indicated that it was 'just a matter of time.' While I truly have no regrets (even looking at my now truly, scarred flat chest) my vanity is still an issue. Time, a lavish, beautiful tattoo of lilacs or orchids and working toward washboard abs to match my washboard chest will help to heal this wound — and, most importantly, no more worries about breast cancer. The guilt and doubt still linger, but then I see the relief in the faces of my family and understand that preventive mastectomy (and going flat) may not be right for everyone, but it was right for me. I am not a survivor, not a previvor, but a preventer." Nanette Elster is a bioethicist. She shares her story and discusses her KevinMD article, "Not a cancer survivor, not a cancer previvor: Am I a cancer preventer?" Did you enjoy today's episode? Rate and review the show so more audiences can find The Podcast by KevinMD. Subscribe on your favorite podcast app to get notified when a new episode comes out. Click here to earn 1.0 AMA PRA Category 1 CME for this episode. Also available in Category 1 CME bundles. Powered by CMEfy - a seamless way for busy clinician learners to discover Internet Point-of-Care Learning opportunities that reward AMA PRA Category 1 Credit(s)™. Learn more at about.cmefy.com/cme-info

Lynch syndrome is a common and often under-diagnosed inherited condition that increases one's risk for a variety of cancers, including colon, rectal, uterine, ovarian, urinary tract, and others. Many individuals with a Lynch mutation develop related cancers at a much younger age than the general population. According to the National Cancer Institute, “It is estimated that 1 in every 280 Americans are living with Lynch Syndrome." Most people living. with this inherited condition are unaware of it, or are diagnosed only after they have developed cancer.Dave Dubin, Founder of “Alive and Kickn”and three-time Lynch Syndrome cancer survivor shares his personal story and talks about the inspiring work his organization is doing through research, advocacy, education and screening. 

Today's Interview is an Encore Episode originally aired in October of 21  with Brittany Quiroz - A Hot MS - MS Influencer - Brittany is a Singer - Songwriter,  Motivational Speaker and Cancer PrevivorIn Britany's own words - Being diagnosed with a neurological disability at the age of 30 is enough to make anyone climb into a hole, curl up and start burying yourself alive. The initial reaction of shock, fear, grief overwhelms us and we are left frozen. Unsure of where we go next. Just saying “it's a lot to take in” doesn't even begin to cover the extensive impact this moment has on your life.You are thrown against a wall of reality with emotions that contradict one another almost leaving you in a state of sudden whiplash. So what is your next move? For Brittany Quiroz now known as “A Hot MS” it was a “fight or flight, do or die” moment, as she says in her lyrics via her motivational music. Having grown up as a Singer-Songwriter Quiroz knew that music would always be a part of her life. Writing music alongside her co-writer and mother Kristen Spath for over 15 years, the message she was meant to convey now was more clear than ever. To motivate. To empower. To strengthen. Quiroz now “A Hot MS” has used her diagnosis of Multiple Sclerosis to impact the lives of other warriors fighting through chronic illness. She is now sharing her story to widen the lens of perception. Mentioned in Interview:IG: #previvorWays to get in contact with Brittany:IG: @ahotmsFacebook: https://www.facebook.com/brittanyquiroz6119Website: https://ahotms.com/ You can find Kathy Chester atdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comInstagram - @msmoveitorloseit @disruptfitnessgymPrevinex - Use the same clinically effective supplements that promote longevity, performance and everyday health as Kathy does.https://www.previnex.com/Use promo code disrupt15 to get 15% offHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

In the eleventh episode of Hey Awesome Girl with Tivi Jones, you'll meet Keia Miller, Counsel with the Department of Veterans Affairs and certified Equal Employment Opportunity (EEO) Investigator. Keia grew up in the small town of Hiddenite, NC, and is currently based in Raleigh, NC. She attended the University of North Carolina-Chapel Hill, graduating in May 2006 with a Bachelor of Arts degree in Political Science and African-American Studies. Keia obtained her Juris Doctor degree from the University of Alabama School of Law in May 2010. She has been licensed to practice law since March 2011. In this episode, Keia opens up to Tivi about being a breast cancer previvor and shares her unconventional self-care tips. She also talks about surviving law school and working as a lawyer. Learn more about Keia Miller: Keia Miller's Linkedin: https://www.linkedin.com/in/keiamiller/ ********* Every week Tivi interviews amazing Boss Babes in tech, medicine, law, entrepreneurship, entertainment, parenting, and more about their lives, goals, and how every day, they are working to add more Pleasure, Ease, and Abundance to their orbit. This show is part business advice, part life coaching, and part real talk with girlfriends. If you're looking for a show that's real and relatable but also inspiring at the same time, Hey Awesome Girl with Tivi Jones is the one for you! You can find us on all platforms @heyawesomegirls. Follow and subscribe to never miss an episode!

The Gays talk to Jaclyn Iskra about what losing their breasts meant to them as a non-binary previvor

Today's guest is Kristen Carbone, founder of Brilliantly, a wearable warming device for survivors of breast cancer and mastectomies.  Kristen tragically lost her mother in her early twenties due to metastic breast cancer.  The followed a decade of testing, health insurance difficulties, anxiety, and stress about developing breast cancer, until she ultimately decided to undergo a preventative mastectomy and implant reconstruction.Among the many challenges that came after the procedure, one of which, was the loss of sensation and constant feeling of coldness in her chest.  In ensuing conversations with other other who had undergone mastectomies and reconstruction, she came to realize that this was an ongoing issue that dramatically affected the quality of womens lives.  Women were using all sorts of methods to feel warm, often resulting in serious burns and scarring of their chests.  Kristen embarked on a multi-year process of research and development, raising funding, and ultimately developing Brilliantly Warm, a wearable device that a woman could insert into her bra and self-control through an app.  There were no cords, no battery packs, and a woman could lead her daily life in comfort without anyone knowing she was wearing the device.  Enjoy this incredibly inspiring story and please share Brilliantly Warm with your community. You can read more about Brilliantly and Kristen's story at https://www.brilliantly.co/Connect with Kristen directly at:  Kristen@brilliantly.co or find her on Facebook or Instagram @brilliantly.co 

I first noticed Merowyn on Instagram during the pandemic, a nurse in full scrubs sharing her experiences of what it was really like to work on the front line, but it was Merowyn's powerful voice advocating for mental health and anti domestic violence that really resonated with me. I was intrigued to learn more about her life... Merowyn grew up in a "clash of cultures" with a Phillipino father and Anglo mother in the suburbs of Melbourne. Physically Merowyn felt out of place as the only brown kid at school and like most kids, just wanted to fit in. Merowyn was also faced with witnessing emotional and physical domestic violence in her home and experienced intergenerational trauma being played out in her family home. In our chat we talk about Merowyn's teenage years where she lived with the impact of her mum's battle with cancer, falling into the "Melbourne shuffle" rave scene as a way to escape her world (and meeting her now husband whilst working in a rave store!!) and later finding her purpose helping people, starting out in pharmacy and later studying nursing. Later in life this affected Merowyn's perspective on relationship and a young adult found herself in a DV relationship, learning the lesson you can not change a person the hard way. Follow Merowyn on Instagram: www.instagram.com/nurse.merowyn Follow Dani on Instagram: www.instagram.com/danivenn See omnystudio.com/listener for privacy information.

We sit down with author, international funny woman, and internet bestie Gila Pfeffer @gilapfeffer to discuss her strong family history of breast cancer and the importance of prevention and early detection.

On today’s episode, I am speaking with Tracy Milgram. Tracy is a breast and ovarian…

This week we bring you our interview with the legendary Merowyn Olavaer. Merowyn is a nurse, domestic violence victim-survivor and advocate, a breast cancer previvor, a writer, a criminology student and incredible cook!  We simply adore this woman and have no doubt you will too. If you would like to follow Merowyn you can find her on Instagram @nurse.merowyn  This week we gave a no so subtle plug for Chōle's next earring release over at @bluebeetleco which is happening today at 8pm. Chōle also recommended the podcast “Twin Flames” and Jussy gave a very niche shout out to a local restaurant whose garlic bread she cannot stop eating.  She is Legend is an independently produced podcast that relies on the support of our incredible listeners - that's you! So, if you'd like to support the show you can hit 'subscribe' on Apple Podcasts or 'follow' on Spotify, and leave a review if you're feeling especially generous.

In the last episode of our Breast Cancer series, Nadia tells us all about those pesky risky genes we need to watch out for, and chats with friend of the show, Chloe Koslen, a Previvor who had to make an unbelievably difficult choice at a young age.For more information on where you can get genetic testing in your area, visit one of these helpful sites:https://www.labfinder.com/blood-test/breast-cancer-screen-brca1-brca2/or...https://myriad.com/products-services/hereditary-cancers/bracanalysis/ Hosted on Acast. See acast.com/privacy for more information.

Today's Interview is with Brittany Quiroz - A Hot MS - MS Influencer - Brittany is a Singer - Songwriter,  Motivational Speaker and Cancer PrevivorIn Britany's own words - Being diagnosed with a neurological disability at the age of 30 is enough to make anyone climb into a hole, curl up and start burying yourself alive. The initial reaction of shock, fear, grief overwhelms us and we are left frozen. Unsure of where we go next. Just saying “it's a lot to take in” doesn't even begin to cover the extensive impact this moment has on your life.You are thrown against a wall of reality with emotions that contradict one another almost leaving you in a state of sudden whiplash. So what is your next move? For Brittany Quiroz now known as “A Hot MS” it was a “fight or flight, do or die” moment, as she says in her lyrics via her motivational music. Having grown up as a Singer-Songwriter Quiroz knew that music would always be a part of her life. Writing music alongside her co-writer and mother Kristen Spath for over 15 years, the message she was meant to convey now was more clear than ever. To motivate. To empower. To strengthen. Quiroz now “A Hot MS” has used her diagnosis of Multiple Sclerosis to impact the lives of other warriors fighting through chronic illness. She is now sharing her story to widen the lens of perception. Mentioned in Interview:IG: #previvorWays to get in contact with Brittany:IG: @ahotmsFacebook: https://www.facebook.com/brittanyquiroz6119Website: https://ahotms.com/ You can find Kathy Chester atdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comInstagram - @msmoveitorloseit @disruptfitnessgymPrevinex - Use the same clinically effective supplements that promote longevity, performance and everyday health as Kathy does.https://www.previnex.com/Use promo code disrupt15 to get 15% offHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

Being the daughter of a Vietnam Veteran, Dr. Kellie knew serving in the military was going to be a part of her life. After earning her commission from the Reserve Officer Training Corps program at Lincoln University, Dr. Kellie joined the Army as a maintenance officer. She was fortunate to serve at various state-side and overseas locations, including being assigned to the Pentagon after 9/11.  After learning that both her and her husband may deploy at the same time, Dr. Kellie made the difficult decision to leave the Army after 11 years of service. She went on to earn her doctorate degree in Organizational Leadership from Grand Canyon UniversityAs a woman veteran, going against the grain comes naturally for Dr. Kellie. After watching her mother and sister battle breast cancer, she learned that she had BRCA1 gene mutation, which greatly increases her lifetime breast cancer risk. It was then that Dr. Kellie made the brave decision to have a preventative mastectomy. Dr. Kellie has since made it her mission to use social media to share her BRCA1 journey in the hopes that women of color will see themselves represented when making informed decisions about breast health, early detection and genetic counseling. Connect with Dr. Kellie:Instagram: https://instagram.com/browngirlandbrcaplusFacebook: https://www.facebook.com/kellie.k.goss/Twitter:  https://twitter.com/brngirlnbrcaplsLinkedIn: https://www.linkedin.com/in/kellie-goss-42a95088Freedom Battle Buddies of Color Linkshttps://linktr.ee/drannjamesSign-up for new episodes alert via email: https://bit.ly/3mkJ7QOSupport the showGrab a free copy of my Interactive Spend Plan that does the math for you!https://bit.ly/interactivespendplanSchedule Your Freedom Chat: https://calendly.com/freedombattlebuddies/freedom-chatConnect with Dr. Annhttps://linktr.ee/drannjamesHere's the budgeting app I've been using for years to tell my dollars where to go! https://ynab.com/referral/?ref=OJ0scBcB5OUaeUJzThinking about launching your own podcast? Start here: https://www.buzzsprout.com/?referrer_id=1602373

Meet Phylis Donelson, who shares a story with a different twist. She is a breast cancer Previvor!A previvor is a term that can be used when an individual is seen as having an elevated predisposition to cancer due to a high occurrence in the family. She has been so kind in speaking about her own story in learning about her options in taking control of her health the best way that was right for her. She shares the story of her mother and two sisters, all with their own very different experiences with breast cancer. As we often say, “every story is unique, every story is worth hearing.”This amazing family has dealt with the multi layers of the path that cancer takes both physically and emotionally over many years, and additionally, it is one more thing that connects them all. As we also say, we are all connected parts of our “Family Tree.”In talking to Phylis and getting to know her and her family's story, we found her to be open, honest, and realistic in all she has learned from this experience over many years. It was a pleasure getting to know her and as you will see, her engaging  personality and wonderful southern accent shines through in this interview! We are sure you will enjoy hearing from Phylis!

In this episode, in honor of Breast Cancer Awareness Month, we speak with Ali Rogin, author of Beat Breast Cancer Like a Boss and award-winning producer of PBS NewsHour. Ali is what is commonly known as a breast cancer previvor, someone who knows they have a mutation that may lead to cancer and takes preventative steps to avoid a diagnosis. With the growth of genetic testing and precision medicine and the ability to isolate genes that can lead to cancer, more and more people may fall into the category of previvors. For instance, women that have the BRCA 1 or 2 mutation, as Rogin does, have a 70% chance of developing breast cancer by the age of 80. Rogin says progress in precision medicine has given these women options they would never have had before, enabling them to make proactive, informed decisions about their future health.

Email Us✉️:Britt: britt@smsspodcast.comLexi: lexi@smsspodcast.comSend us stuff

A BRCA1 gene mutations can mean an 87% lifetime risk of developing breast cancer for a woman.  Dr. Lindsey Urbatchka joins Lean In to share what it was like to receive that news at 29 yo, the options she had, and why she made the decision she made.https://wellnesspharmdconsulting.com/blog%2Farticleshttps://www.mayoclinic.org/tests-procedures/brca-gene-test/about/pac-20384815Follow Dr. Jabraan PashaWebsite: Unlockingimplicitbias.comInstagram: https://www.instagram.com/what_medicine_did/?hl=enTwitter- https://twitter.com/jabraanpasha?lang=enProduced & Edited by: Citizensofsound.com

As a 24-year-old Miss America contestant, Allyn Rose made headlines across the globe with the controversial decision to undergo a preventative double mastectomy after losing her mother, grandmother and great aunt to breast cancer. Melissa sits down with Allyn to discuss her decision and her path to becoming founder of The Previvor.

Join host, Dr. Eleonora Teplinsky, as she speaks with Gila Pfeffer. Gila is a writer,…

Stef can't believe how much she hearts her new cardiologist, Amy's pharmacist flashes her (she loves it!), and we ask and answer: what the absolute hell is up with MyChart automatically dropping results into YourChart now? Is a rogue coder trying to ruin our lives? Stef explains; Amy complains. Thanks, CARES Act. Not! We read letters from a cancer aunt, a super-dramatic update from “pre-vivor” Sam, and great life advice from Lowry for cancer people and non-cancer people alike. Today's RATS talks eradicating cervical cancer: let's just do it already.And hey, while you're here would you mind giving us a rating and/or a review? It's quick and really helps to grow the reach of the show!  To read more about the RATS in this episode, visit https://www.cancer.gov/news-events/cancer-currents-blog/2020/hpv-vaccine-prevents-cervical-cancer-sweden-study (Our RATS theme song is by Jessica Boudreaux of Summer Cannibals.)We're ding-donging around on Instagram @cancerforbreakfast Instacart is the go-to for fast and healthy grocery delivery. To support the podcast and get your first delivery free, visit https://instacart.oloiyb.net/cancer 

Allyn Rose, a former Miss America contestant lost her mom when she was just 16 years old. Her family history of breast cancer forced her to re-examine her life and her breasts. After choosing a preventive double mastectomy, Allyn was featured as a model in the Sports Illustrated swimsuit edition. Taking control of her life and choosing to break the chain of cancer, Allyn founded a non-profit called The Previvor to raise breast cancer awareness and educate women on their options.

This week I had the opportunity to talk with Maggie, who learned she has a gene mutation that put her at significantly higher risk for both breast and ovarian cancer. So on top of dealing with the ticking of the biological clock that we all hear to a certain extent, Maggie had even more pressing biological matters to address on her path to motherhood. To me, Maggie's story stands out because these are exactly the kinds of circumstances that can make us feel hopeless and helpless, like a victim in our own story...unless we chose to write a different, more empowering narrative...which is exactly what Maggie has done. Listen as she shares the ups and downs of her journey in a very candid way. I hope that you'll learn from her and be inspired by how she has persevered and chosen to see the good in very challenging circumstances. You can connect with Maggie on Instagram @mwilson102

Like her mother Eileen, who had been diagnosed with ovarian cancer, Eva was a BRCA2 mutation carrier.  In 2016 Eva decided to have a preventative double mastectomy and hysterectomy with oophorectomy.  She had witnessed her mother's frustrated attempts to find functional but stylish recovery clothing that could accommodate  PICC lines, drains and ports.  Eva had 6 surgeries over 18 months and faced the same wardrobe challenges.  Those experiences  and Eva's luxury branding expertise inspired The Eileen & Eva Heal With Style Collection.  The beautiful garments are designed in California and can be purchased in The Eileen & Eva online boutique.

Guest Tracy Milgram-Posner founder of BRCASTRONG

Chatting with Tracy M the Founder and President of BRCA Strong we find out about what is BRCA, how you can be tested and how BRCA Strong came to be. Join us as this Previvor, Warrior, champion shares her story. --- Send in a voice message: https://podcasters.spotify.com/pod/show/riseandsucceed/message Support this podcast: https://podcasters.spotify.com/pod/show/riseandsucceed/support

Our director of operations Samantha Dixon shares her battle with breast cancer. This woman is a fighter, a survivor and a thriver. Sam shares the importance of finding a support group as it assists in uplifting and strengthening you through your battle. We speak about BRCA Strong and the founder Tracy as a Previvor and her mission to help, support and assist others through their battle. If you need any assistance, questions, guidance, help during your Breast Cancer battle or you have questions about the BRCA gene test, please contact BRCA Strong (www.BRCAStrong.org) --- Send in a voice message: https://podcasters.spotify.com/pod/show/riseandsucceed/message Support this podcast: https://podcasters.spotify.com/pod/show/riseandsucceed/support

This week's guest is Allyn Rose. As a 24-year-old Miss USA and Miss America contestant, Allyn made headlines across the globe with her controversial decision to become a “previvor” by choosing to undergo a prophylactic double mastectomy after losing her mother, grandmother and great aunt to breast cancer. As a result of her advocacy efforts, she was awarded the 21st Annual Congress on Women's Health's “Women's Health Advocacy Award” and a Lifetime Achievement Award at the 2017 Breast Cancer Summit for her continued dedication to educating women in breast cancer prevention. Allyn is the first woman with a mastectomy to be featured by Sports Illustrated Swimsuit and was the creator of the social media movement #SelfExamGram, encouraging women to perform monthly self breast exams. Allyn shares her entire journey with us, including her decision to undergo a double mastectomy at the age of 26, starting the organization "The Previvor", her involvement in the AiRS Foundation, Mens breast health, and much more. Allyn's Recommended Resources: 1) The Previvor - www.theprevivor.org 2) The AiRS Foundation - www.airsfoundation.org 3) The Breasties - www.thebreasties.org 4) Ana Ono - www.anaono.com Contact Allyn: Instagram: @allynrose, @theprevivor Website: www.allynrose.com ________ Become a Member of The V Hive: www.thevhive.com/memberships ________ If you want to get in touch with The V Hive, please send an e-mail to info@thevhive.com. ________ Follow The V Hive: INSTAGRAM - @thevhive TWITTER - @thevhive_ FACEBOOK - @thevhivemedia WEBSITE - www.thevhive.com

Nikki shares her story of Previvor to Non Profit founder to Podcast host. A Previvor is a woman who has a strong family history or a gene mutation that undergoes a surgery to remove her healthy breasts to limit her chances of getting breast cancer. Also learn more about Redefined Courage in this episode and how you can be a part of it! Check out the website...here www.redefinedcourage.con Be kind and leave a review where you are listening to this podcast! We appreciate you!  --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/couragecollective/message

Today I'm speaking with Allyn Rose, Founder of The Previvor. We're diving into preventative mastectomies, genetic mutations, surgical options, IVF, and why being your own advocate is so important. Learn more about Allyn and her mission to inform and inspire future Previvors at her website https://theprevivor.org/Follow Allyn on Instagram!A podcast to encourage and empower the cancer community. Hosted by Jessica Walker, founder of Better + Co. Follow Better + Co on social media HERE Thank you for listening! A special 10% off discount specifically for podcast subscribers: https://www.betterandcompany.com/discount/GETTINGBETTERPODCODE: GETTINGBETTERPOD

Universe, what's good?! Today's guest is Kristen Carbone of Brilliantly, an organization dedicated to post-mastectomy care. Thanks to everyone who made the Fearless in Fuchsia Luncheon in Toledo a success! It was such an honor to represent Salvatore Capelli and Sofi Stella as a survivor model. When the numbers come in, we will let you know how much The Victory Center was able to raise for cancer patients. It was an incredibly magical day. Apologies for getting this interview out a week late. Thank you Kristen for showing up and being flexible! Kristen discusses her unique experience as a Previvor without the BRCA mutation, as well as her motivation behind starting Brilliantly. We are all one diagnosis away from a completely different life, and Kristen found this out after being a Museum Curator before starting Brilliantly. While discussing the topic of dating, the conversation veers towards what is necessary to date in a healthy manner. It is easy to want to fast-forward to dating after a mastectomy to grab onto some kind of normalcy that disappears after undergoing such an invasive surgery. Not only is Kristen incredibly wise, bringing great tips for dating to the table, she's also bright as a penny. Tune in as we discuss her invention that is launching in September 2019. If you would like to contact Kristen, you can do so on Instagram, Facebook, and her website. Production Credits Joseph Coutcher - Production Travis Moore - Vocals   Music Credits "Feeling Good" by LAKEY Inspired

Universe, what's good?! Today's guest is Kaitlin Christine of HerStoryHerWay.com, a wellness and advocacy organization. Kaitlin discusses her experience as a Previvor turned Survivor, as well as her motivation behind starting HerStory. You may want to have tissues handy, because Kaitlin bravely discusses her experience as her mother's caretaker as her mother battled Metastatic Breast Cancer, only to find out she was also headed towards the same diagnosis. Our conversation was both poignant and informative as we discussed Kaitlin's experiences with her medical team, how she had to take matters into her own hands, and the way her career was impacted as a result. As an advocate, Kaitlin worked for global organizations and is extremely knowledgeable. You can read more on her experience here. You can reach Kaitlin through Email, Instagram, or Twitter.  Ladies, the next time you receive a letter stating you have dense breasts, please thank Dr. Nancy Cappello for her advocacy work. As an individual with dense breast tissue whose breast cancer nearly went undetected, she worked tirelessly for transparency. Read up on Dr. Nancy Cappello here, who we lost to Metastatic Breast Cancer this week.  We are now on YouTube! Thanks, Joe for your hard work with the video production. If you would like to support the podcast, please rate, comment and share!   Production Credits Joseph Coutcher - Production Travis Moore - Vocals   Music Credits "Feeling Good" by LAKEY Inspired - https://www.youtube.com/watch?v=YZC18e7EaqI

Mel sits down with David Tabatsky, a professor, and prolific writer. David collaborated with The Chicken Soup for the Soul publishers and on the The Chicken Soup for the Soul The Cancer Book. Finding that there were more amazing survivor stories out there than could go in the book, David wrote Write for Life, Communicating Your Way Through Cancer. Write for Life is a great book that advocates healing through writing. If you are thinking of blogging, writing a book or just putting your thoughts down, this is the show for you. Available on demand now!

Mel sits down with Previvor, Amy Shainman. Amy is a member of FORCE, Facing Our Risk of Cancer, Empowered. Amy had a prophilactic mastectomy much like Angelina Jolie did because the BRCA gene runs in her family. Amy also talks about the new film Decoding Annie Parker. In the film, researchers discoverd the BRCA 1 gene through Parker's family history. If your family has a history of cancer this is one show you won't want to miss. Available on demand now!!!