Podcast appearances and mentions of Kate Wilson

  • 65PODCASTS
  • 102EPISODES
  • 38mAVG DURATION
  • 1EPISODE EVERY OTHER WEEK
  • Sep 25, 2025LATEST

POPULARITY

20172018201920202021202220232024


Best podcasts about Kate Wilson

Latest podcast episodes about Kate Wilson

DNA Dialogues: Conversations in Genetic Counseling Research
#20- Revisiting Research: Implementation Science & Retrospective Chart Review

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Sep 25, 2025 54:29


In this episode, we talk with two authors who have papers featured in the special issue of the Journal of Genetic Counseling on Research Methods in Genetic Counseling. In the first segment we explore implementation science and its utilization in bridging the gap between research and clinical practice. In our second segment, we talk to an author about retrospective chart reviews and the benefits and drawbacks of this methodology.   Segment 1: A guide to utilizing implementation science for genetic counseling   Alanna Kulchak Rahm is a certified genetic counselor and implementation scientist with a PhD in Health and Behavioral Science. She has spent her career specializing in the implementation of genomics and precision health in healthcare systems. For over 25 years, she has conducted research on the utilization of genetic information by individuals and healthcare systems, new paradigms for identifying individuals with genomic risk, and new service delivery models for genomic testing. She has been a driver for the integration of implementation science and patient engagement to understand and study the integration of genomics into the learning health system, and is a tireless advocate of implementation science in genetic counseling. She has participated in and led many workshops and trainings on implementation science in genetics, serving as a faculty mentor for the NIH Training in Dissemination and Implementation Research in Cancer (TIDIRC) and recently as a co-lead of the Training in Dissemination and Implementation Research in Genomics and Precision Public Health (TIDIR-GPPH). She is currently a Program Director in the Division of Genomic Medicine at the National Human Genome Institute (NHGRI) where she directs the Network of Genomics-Enabled Learning Health Systems and other programs and continues to advance the integration of implementation science and genomics.   In this segment we discuss: Implementation science (IS) as a bridge between research and clinical practice in genetic counseling Misconceptions about IS, key frameworks like RE-AIM, and practical applications in daily work Using IS to identify and reduce inequities in genomic medicine Future integration of IS into training, research, and professional practice Link to the 2025 annual conference on dissemination and implementation    Segment 2: Leveraging hindsight: A retrospective chart review how-to for genetic counselors   Dr. Ramsey is the Section Chief of Individualized Therapeutics in the Division of Clinical Pharmacology, Toxicology and Therapeutic Innovation at Children's Mercy. She is leading the implementation of a pharmacogenomics program that is fully integrated with the electronic health record, developing model-informed decision support for several medications, and Co-director of their Pediatric Clinical Pharmacology Fellowship Program. Before joining Children's Mercy, Dr. Ramsey was an Associate Professor and co-director of the Genetic Pharmacology Service at Cincinnati Children's Hospital. She completed her postdoctoral fellowship in Pharmacogenetics at St. Jude Children's Research Hospital and received her PhD in Molecular, Cellular, Developmental Biology and Genetics from the University of Minnesota – Twin Cities. Dr. Ramsey is interested in all aspects of pharmacogenetics, from basic research to implementation in patient care.   In this segment we discuss: The role of retrospective chart reviews in genetic counseling research Common pitfalls such as unclear aims, time demands, and data extraction challenges Strategies for success, including SOPs, REDCap, and multidisciplinary collaboration Lessons learned on refining criteria, ensuring data quality, and team engagement   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Stephanie Schofield. 

How To Academy
Kate Wilson - The Spycops Files

How To Academy

Play Episode Listen Later Sep 19, 2025 34:09


In 2003, British police infiltrated a group of idealistic young environmental activists, forming sexual relationships and spying without warrant on hundreds of innocent civilians. Among these young activists was Kate Wilson, who developed an intimate relationship with Mark. Unbeknownst to her, Mark was a fictional persona created by the Metropolitan Police to spy on her. After this shocking discovery, Kate Wilson fought back, and now she joins us to tell her story. Learn more about your ad choices. Visit podcastchoices.com/adchoices

DNA Dialogues: Conversations in Genetic Counseling Research
Shifting Paradigms: APOE in Dyslipidemia & Patient Voices in Neurogenetics

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Aug 28, 2025 44:55 Transcription Available


We are discussing perspective changes in neurology genetics with the crossover of the APOE gene in neuro and cardio as well as telehealth for neurology predictive testing. Segment 1: Is it time for a paradigm shift? Inclusion of APOE  on genetic dyslipidemia panels.   Emily Brown is a certified genetic counselor at the Center for Inherited Heart Disease at Johns Hopkins Hospital. She graduated from the University of Maryland Genetic Counseling Program in 2014 and has practiced in cardiology for the past 10 years. Her main areas of interest include dyslipidemias, and she is a member of the National Lipid Association.   Hannah Ison is a cardiovascular genetic counselor at the Stanford Center for Inherited Cardiovascular Disease. She received her Master's in Medical and Molecular Genetics from Indiana University in 2018, and returned home to California to begin her career. Her primary clinical interest includes working with patients who have inherited lipid conditions in both the adult and pediatric setting. A large part of her role has been focused on developing a Pediatric Lipid Clinic at the Stanford Children's Hospital, allowing her to care for patients across the generations. Hannah was the co-chair of the Dyslipidemia Working Group through the cardiovascular SIG from 2020-2024 where she worked with members to develop dyslipidemia resources. In addition to her work in the lipid space, she also provides inpatient and outpatient genetic counseling to patients with isolated congenital heart disease, and enjoys participating in various research opportunities.    In this segment we discuss: - APOE's relevance in both Alzheimer's and cardiovascular disease - Counseling strategies for APOE alleles (ε2, ε3, and ε4), including penetrance, lifestyle modification, and exploration of risk for conditions and symptoms external to Alzheimer's - Case studies highlighting APOE's diagnostic, variant, and treatment insights - The need for standardization, education, and reframing of APOE testing in practice Segment 2: Patient-reported outcomes for remote and in-person visits for genetic counseling in adult neurology.   Rachel A. Paul, MS, CGC and Laynie Dratch, ScM, CGC are board-certified genetic counselors who specialize in adult neurogenetics and work with the Penn Neurogenetics Therapy Center team in Philadelphia, PA (https://www.linkedin.com/company/penn-neurogenetics-therapy-center).   Rachel provides clinical and research genetic counseling services for the Division of Movement Disorders at the University of Pennsylvania. Her research interests include genetic screening for clinical trials access, remote/telemedicine genetic services, and motivations/barriers for genetics utilization. She graduated cum laude from Temple University in Philadelphia, previously worked as a genetic counseling assistant (GCA) for the Penn neurogenetics program, and completed her training with the Arcadia University (now University of Pennsylvania) Genetic Counseling Program.   Laynie's clinical focus includes frontotemporal degeneration (FTD) spectrum disorders, amyotrophic lateral sclerosis (ALS), and other neurodegenerative conditions. Her research interests include the lived experiences of at-risk individuals, predictive genetic testing considerations, and genetic counseling access and service delivery. She graduated summa cum laude from Colgate University with a BA in neuroscience and a minor in psychology, and completed her genetic counseling masters training at the Johns Hopkins University and the National Institutes of Health.   In this segment we discuss: - How COVID-19 pushed neurogenetics counseling from in-person to telehealth. - Why patient satisfaction stayed high across both formats, with video outperforming phone. - What drives visit preferences—travel, tech comfort, privacy, and clinical needs. - Future research to refine protocols, improve access, and explore broader applications.   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Stephanie Schofield.

RNZ: Afternoons with Jesse Mulligan
Demystifying the world of Intellectual Property

RNZ: Afternoons with Jesse Mulligan

Play Episode Listen Later Aug 12, 2025 10:17


From the brand of coffee you drink, the song you like to sing, to the car you drive .. examples of intellectual property are everywhere. Which means there are also disputes over them. Right now there are two TikTok stars fighting over who owns, and I quote, "clean girl aesthetic" From October, a dedicated judicial process will be introduced in our Courts to streamline such arguments. Kate Wilson has written a book called 'The Hidden Mechanics of IP: Demystifying Intellectual Property', and tells Jesse why IP is important.

DNA Dialogues: Conversations in Genetic Counseling Research
#18-Stats, Stories, and Science: Rethinking Research in Genetic Counseling

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Jul 31, 2025 73:37


In this episode, we talk to two genetic counselors about their recent publications in a special edition of the Journal of Genetic Counseling focused on research methods in genetic counseling. First, Benjamin Helm delves into statistical approaches and discusses how transparency and honesty in research can lead to more meaningful scientific contributions. Then Kennedy Borle explores the challenges and benefits of integrating qualitative and quantitative approaches in genetic counseling research.   Segment 1: “Research methods in genetic counseling: Statistical approaches and resources”   Benjamin M. Helm, PhD, MS, CGC, is an Associate Professor of Clinical Medical & Molecular Genetics at Indiana University with specific interests in cardiovascular genetics, epidemiology, and public health genomics. He works within the Cardiovascular Genetics program at IU School of Medicine/Indiana University Health. His clinical and academic interests include genetic arrhythmias, congenital heart disease, familial hypercholesterolemia and lipoprotein (a), polygenic score methods, and assessment of population screening for genetic cardiovascular disorders. Additional work extends into public health, improving investigation of genetic risk factors for sudden death in infants and children and birth defect surveillance in Indiana.   In this segment we discuss: Importance of systematic bias and robust study design Understanding parametric research: assumptions, sample size, and data behavior Common misconceptions, such as the over-reliance on p-values for legitimacy and the pitfalls of p-hacking Encouragement for genetic counselors to engage with statistical research   Segment 2: “Using mixed methods for genetic counseling research”   Kennedy Borle is a board-certified genetic counsellor and PhD Candidate in Interdisciplinary Studies at the University of British Columbia. Her research is focused on understanding unmet need for clinical genetic services to improve equitable access to care. Kennedy is also passionate about promoting high quality and justice oriented genetic counselling research practices.   In this segment we discuss: The complexities and advantages of using mixed methods in genetic counseling Challenges of integrating qualitative and quantitative data The importance of rigorous planning and study design How collaboration can enhance research outcomes   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.  Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Stephanie Schofield.

DNA Dialogues: Conversations in Genetic Counseling Research
Patient Understanding of Sex and Gender in cell-free DNA Screening

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Jun 26, 2025 27:51 Transcription Available


In this episode, we explore the motivations, findings, and clinical implications of a recent study examining patient understanding of the terms “sex” and “gender” in the context of prenatal testing, particularly non-invasive prenatal testing (NIPT).    “Patient understanding of fetal sex versus gender in the context of routine cell-free DNA screening”   Mindy Kolodziejski (she/her) is a Senior Genetic Counselor at University of Kentucky (UK) HealthCare and a graduate of the UTHealth Houston Genetic Counseling Program (UTGCP). She is the first author of "Patient understanding of fetal sex versus gender in the context of routine cell-free DNA screening," published in the Journal of Genetic Counseling, and presented this research at the National Society of Genetic Counselors (NSGC) conference in 2024. As a queer genetic counselor, Mindy is passionate about LGBTQIA+ issues in genetic counseling and strives to improve care, inclusion, and accessibility for transgender and gender-diverse (TGD) individuals. She also provides genetics services in the UK Differences of Sex Development (DSD) clinic. Connect with Mindy on LinkedIn: https://www.linkedin.com/in/mindy-kolodziejski-a07573186/   In this segment we discuss: - Why the terms sex and gender are different, but are often used interchangeably - Factors influencing patient understanding of sex and gender - Ways to help patients understand the information being presented while balancing being accurate and appropriate with the language being used - Specific content and approaches that can be added to prenatal education programs   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

Highlights from Moncrieff
My Boyfriend Was an Undercover Cop

Highlights from Moncrieff

Play Episode Listen Later Jun 18, 2025 13:35


Kate Wilson, author of Disclosure: Unravelling the Spycops Files, joins Moncrieff to discuss how she discovered her long-term boyfriend was, in fact, an undercover police officer tasked with infiltrating activist groups, and how she fought a decade-long legal battle against the British state.Listen here

Moncrieff Highlights
My Boyfriend Was an Undercover Cop

Moncrieff Highlights

Play Episode Listen Later Jun 18, 2025 13:35


Kate Wilson, author of Disclosure: Unravelling the Spycops Files, joins Moncrieff to discuss how she discovered her long-term boyfriend was, in fact, an undercover police officer tasked with infiltrating activist groups, and how she fought a decade-long legal battle against the British state.Listen here

Demystifying Genetics
From Rural Roots to Genetic Advocate. Demystifying Genetics with Kate Wilson.

Demystifying Genetics

Play Episode Listen Later Jun 2, 2025 53:04 Transcription Available


In the season finale of Demystifying Genetics, host Matt is joined by fellow genetic counselor and podcaster, Kate Wilson, the voice behind All Access DNA. They delve into the evolving landscape of genetic counseling, exploring Kate's personal journey from rural beginnings to becoming a passionate advocate for equitable access to clinical genetics. This episode highlights the disparities within healthcare systems, the importance of accessible genetic information, and how Kate is breaking norms with her dual role as a counselor and a science communicator. Tune in for a compelling discussion on the responsibilities and opportunities for genetic counselors beyond traditional clinical roles. Enjoy this insightful conversation as Matt concludes the season and hints at exciting changes for the show's future format. Here is a link to the article (Tschirgi et al., 2023) that we discuss in this episode. This is Kate's podcast: https://allaccessdna.podbean.com/ Thank you to my sponsor TrakGene.

DNA Dialogues: Conversations in Genetic Counseling Research
#16-Cancer Care: Surgical Genetic Testing & Pancreatic Cancer Screening

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later May 29, 2025 52:10


In this episode we are exploring two publications related to cancer care. In our first segment we talk to 2 authors about their research on genetic counselors and identification of patients for high-risk pancreatic cancer screening. In our second segment, Khalida interviews a genetic counselor about their study to evaluate surgical patient perspectives of genetic testing provided by a non-genetics professional.  Segment 1: “Practices and perspectives of genetic counselors about high-risk pancreatic cancer screening: A cross-sectional survey study” Amy Wiegand is a board-certified genetic counselor who specializes in cancer genetics. She graduated with her Master's in Genetic Counseling in 2017 from from the Icahn School of Medicine at Mount Sinai and has worked as a cancer genetic counselor at the Smilow Cancer Genetics and Prevention Program at Yale-New Haven Health since 2017 where she has seen over 2500 patients for a variety of hereditary cancer indications. Her research interests include hereditary pancreatic cancer and alternative delivery care models for genetic testing. Aparna is a senior genetic counseling assistant (GCA) at Smilow Cancer Genetics and Prevention Program at Yale New Haven Health where she has worked since 2019, and she has over 6 years of experience as a GCA. She holds a Master's degree in Biomedical Genetics and a Bachelor's degree in Biotechnology. She also has a varied background in administration, finance and customer service. She is a high-performing individual and was recently recognized by her colleagues as ‘Employee of the Quarter' and honored by the organization as ‘Smilow Star' for consistently going above and beyond for the patients and the co-workers and for exemplifying the health system's values. She contributes to the program in a variety of other ways outside of her role and works collaboratively with the team to create a patient centered environment. She has a strong interest in Cancer Genetics and is passionate about research. She is currently working on another research project, the abstract of which was selected for presentation in a Poster Session at 2025 ASCO (American Society of Clinical Oncology) annual meeting. She enjoys being part of a collaborative and dynamic team at Smilow Cancer Genetics and Prevention program and is excited about the upcoming research initiatives in the program. In this segment we discuss: - The significance of pancreatic cancer surveillance for high-risk individuals and why early detection plays a critical role in improving outcomes. - How genetic counselors are uniquely positioned to identify and refer individuals at high risk for pancreatic cancer, emphasizing their role in screening efforts. - An overview of the 2019 CAPS (Cancer of the Pancreas Screening) consensus guidelines and how they are applied to identify high-risk individuals for surveillance - The finding that nearly 70% of genetic counselors accurately identified individuals eligible for screening and discussed the factors that may have contributed to this high rate. - The association between provider comfort level and accuracy in identifying high-risk individuals, and discussed strategies to improve provider confidence and access to screening programs.   Segment 2: “Patient experiences of cancer genetic testing by non-genetics providers in the surgical setting” Katie Fiallos is a board-certified genetic counselor who earned her Master of Science in Genetic Counseling from the Johns Hopkins University/National Human Genome Research Institute Genetic Counseling Training program in 2017 and worked for seven years as a cancer genetic counselor at Johns Hopkins. She joined the Department of Medical and Molecular Genetics at Indiana University in August 2024. She is fluent in Spanish and provides genetic counseling in English and Spanish to participants with Parkinson's disease enrolled in the PD GENEration study. She has authored several academic papers related to genetic counseling, and her current research interests include provision of genetic counseling to Latine individuals, alternate service delivery models, and patient experiences with genetic testing and their informational desires. She lives in Michigan with her family and enjoys staying active, particularly practicing aerial silks. The research for the paper we're discussing was done while she was at Johns Hopkins and was funded by the Jennifer L. Brager Memorial Research award through the Johns Hopkins Kimmel Cancer Center.   In this segment we discuss: - Why hereditary cancer genetic testing is becoming increasingly important for patients with breast cancer, especially in relation to surgical decision-making. - The findings that patients preferred genetic testing at an existing appointment shortly after diagnosis, and explored how this timing affects their overall experience. - How many patients had already considered or wanted genetic testing before it was offered, shedding light on patient awareness and readiness. - Why patients were primarily motivated by concern for relatives and a desire for complete information, rather than surgical decision-making. - Gaps in patient-provider communication identified in the study and suggested ways for providers to address these issues in clinical practice.   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

DNA Dialogues: Conversations in Genetic Counseling Research
#15-DNA Day: Unexpected DTC Results & Gender Diverse Care

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Apr 24, 2025 54:45


In this episode we feature 2 articles that explore hot topics in genetics as well as opportunities to improve patient care in honor of DNA Day on April 25. DNA day commemorates the completion of the Human Genome Project and the discovery of DNA's double helix. Both of these studies utilize qualitative methodologies to highlight people's experiences and share their stories. Segment 1: Not Parent Expected” results through direct-to-consumer genetic testing Julia Becker (she/her) is a board-certified genetic counselor and CSU Stanislaus Genetic Counseling Program graduate. She has a strong interest in the ethical, psychological, and social implications of genetic testing, particularly in the context of unexpected parentage discoveries. Julia is the first author of the article, "Experiences of Individuals Receiving ‘Not Parent Expected' Results Through Direct-to-Consumer Genetic Testing," published in the Journal of Genetic Counseling. She presented this research at the American College of Medical Genetics and Genomics (ACMG) Annual Conference in 2021, contributing to the ongoing dialogue on the impact of unexpected genetic findings. Her work focuses on supporting individuals navigating complex genetic discoveries and advancing awareness within the genetic counseling community. In this segment we discuss: - The rise in Not Parent Expected (NPE) discoveries through direct-to-consumer genetic testing and what it means to receive this result. - Key emotional themes from interviews with 25 participants, including identity disruption, grief without death, and shifting family dynamics. - How a background in genetic counseling informed a sensitive and in-depth interview approach. - The emotional motivations behind seeking out biological relatives and the varied outcomes of those efforts. - The need for improved informed consent and follow-up care from DTC companies.   Segment 2: Transgender and gender diverse patients' experiences with pregnancy-related genetics discussions: A qualitative study Jaime Schechner (she/her) works as a neurology genetic counselor at Boston Children's Hospital. She completed her Master of Science in Genetic Counseling at Boston University, and previously worked as a genetic counseling assistant at Beth Israel's Maternal Fetal Medicine Center. Darius  Haghighat (he/him) is a reproductive genetic counselor at Boston Medical Center and an Assistant Professor of Obstetrics and Gynecology at Boston University Chobanian & Avedisian School of Medicine. He has prior experience as a cancer genetic counselor as well. He completed his Master's in Genetic Counseling at Boston University. As a queer genetic counselor he is especially passionate about LGBTQIA+ health equity. In this segment we discuss: - The inspiration behind focusing the study on pregnancy-related genetic counseling experiences among trans and gender diverse (TGD) individuals. - Major gaps in reproductive healthcare for TGD patients, including misgendering, binary language, and lack of provider knowledge. - Participant stories about feeling unseen or misgendered, and discussed the emotional impact of these encounters. - Frustrations with terms like "maternal" and "advanced maternal age," and suggested inclusive alternatives for clinical language. - Moments of affirming care, showing how small gestures can have a powerful impact across the healthcare journey. - The need for systemic change, including inclusive policies, provider education, and future research that centers TGD voices. Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors. Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.  For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.  Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

DNA Dialogues: Conversations in Genetic Counseling Research
#14- Cardio & Genetics: Exploring Revenue & Best Practices

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Mar 27, 2025 56:32


In this episode, we are discussing 2 articles focused on cardiovascular genetics. In the first segment, Khalida talks to authors Marianne and Erin about their research exploring the opportunities for downstream revenue of cardiac genetic counseling services in a pediatric medical center. In the second segment, Naomi chats with Jodie and Erin about the recent NSGC Practice Resource about genetic testing and counseling for hypertrophic cardiomyopathy. Segment 1: Cardiac genetic counseling services: Exploring downstream revenue in a pediatric medical center Marianne Olson, MS, CGC is a genetic counselor at Baptist Health in Kentucky. She provides prenatal genetic counseling at Maternal Fetal Medicine clinics in Louisville and Lexington. Marianne graduated from the Cincinnati Genetic Counseling Graduate Program in 2024. Prior to working as a genetic counselor, Marianne taught high school chemistry and biology for 12 years. Erin Miller is an Associate Professor in the University of Cincinnati College of Medicine. Erin is a genetic counselor IN THE DIVISION OF CARDIOLOGY at Cincinnati Children's Hospital Medical Center. She leads the cardiology genetic counseling team in providing genetic counseling services to individuals of all ages with and at risk for cardiovascular disease. Erin is focused on improving access to genetics services for families with inherited cardiovascular diseases. In this segment we discuss: - What sparked the decision to explore downstream revenue (DSR) in a cardiac genetic counseling setting - Financial challenges institutions face when hiring genetic counselors, especially around reimbursement - The role of genetic counseling in reducing costs by guiding risk stratification and avoiding unnecessary testing - Limited uptake of cardiac screening among at-risk relative and strategies that could help improve adherence - How findings from this study can support the case for sustaining genetic counseling roles within pediatric cardiology - Potential to adapt the study's methodology to other specialties like neurology or prenatal genetics, and considerations for doing so   Segment 2: Genetic testing and counseling for hypertrophic cardiomyopathy: An evidence-based practice resource of the National Society of Genetic Counselors Erin Miller (she/her) is an Associate Professor in the College of Medicine at the University of Cincinnati and a cardiac genetic counselor at Cincinnati Children's Hospital Medical Center in the Division of Cardiology. She leads the cardiology genetic counseling team in providing genetic counseling services to individuals of all ages with and at risk for cardiovascular disease. Erin is focused on improving access to genetics services for families with inherited cardiovascular diseases. Associate Professor Jodie Ingles (she/her)  is Head of the Clinical Genomics Laboratory and Program Director of Genomics and Inherited Disease Program at Garvan Institute of Medical Research. She is a cardiac genetic counsellor in the Department of Cardiology, Royal Prince Alfred Hospital Sydney. Her team is focused on using genomics to improve diagnosis and care of families with inherited cardiovascular diseases. In this segment we discuss: - The motivation behind creating an official practice resource focused on genetic testing and counseling for HCM - Deep dive into the first major recommendation: offering genetic testing to all individuals with a suspected or confirmed diagnosis of HCM, paired with appropriate genetic counseling - Exploration of the second recommendation: ensuring that genetic tests are selected, ordered, and interpreted within the context of genetic counseling, and the complexities that come with this process - Discussion of the third recommendation: providing cardiac and cascade genetic testing to at-risk relatives, without age limitations, and why this is critical for effective family-based care - A look at the barriers to integrating genetic services into cardiology practices, especially in settings without dedicated genetics expertise   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors. Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.  For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.  Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.  

DNA Dialogues: Conversations in Genetic Counseling Research
#14- Rare Disease Day 2025: Digital Tools for Rare Conditions & Navigating Ultra-rare Disorders

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Feb 27, 2025 48:04


In this episode we are exploring rare and ultra-rare disease in honor of Rare Disease Day on February 28 which raises awareness for the 300 million people worldwide living with a rare disease. We are talking with one author about their study on the role of digital tools in rare disease management and another author about their research into experiences of parents who have a child with an emerging-ultrarare disorder. Segment 1: Exploring the role of digital tools in rare disease management: An interview-based study Andrea Chang works as a Genomic Science Liaison at Quest Diagnostics and earned her MS in Genetic Counseling from UCLA's inaugural genetic counseling class. In this segment we discuss: The role of digital tools in healthcare management for rare diseases Real-world examples of existing digital tools for the rare disease community The impact of rare disease on the global population The healthcare gaps currently not addressed by digital tools Recommended digital tool features Segment 2: The book is just being written: The enduring journey of parents of children with emerging- ultrarare disorders Bethany Stafford-Smith works clinically as a genetic counsellor at University Hospitals of Leicester. She also works for Great Ormond Street Hospital as a Research Genetic Counsellor. In this segment we discuss: The definition of emerging ultra rare disorders or E-URD Experiences of parents with children diagnosed with an E-URD Parents' perceptions on the utility of a diagnosis Challenges faced by parents seeking medical and social support after receiving an E-URD diagnosis for their child How researchers and healthcare providers can support advocacy in E-URDs Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors. Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.  For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.  Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

DNA Dialogues: Conversations in Genetic Counseling Research
#12-Genetic Testing in the General Population: Communication and Understanding

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Jan 30, 2025 43:21


On This Episode We Discuss: In this episode we explore genetic testing in low risk populations, both in direct-to-consumer and clinical settings. We interview authors on two recent JoGC papers related to topics of communication of health risks, understanding of genetic testing, and informed decision-making. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website.   Segment 1: An analysis of direct-to-consumer genetic testing portals and their communication of health risk and test limitations Nicole Lee is an associate professor of communication in the School of Social and Behavioral Sciences at Arizona State University. Her research examines the intersection of science communication, public relations, and digital media. This work has been applied to many contexts including climate change, biodiversity research, wellness products, and direct-to-consumer genetic testing. x: @lee_nicole linkedin: https://www.linkedin.com/in/nicoleleepr/   In this segment we discuss: - What motivated the exploration of how direct-to-consumer (DTC) genetic testing companies communicate health risks to consumers. - Potential impacts on consumers who may misinterpret relative risk when presented without adequate context. - Importance of genetic counselors in improving interpretation and communication of DTC genetic test results. - Suggestions for enhancing transparency and clarity in communicating health risks to consumers.   Segment 2: Non-Invasive Prenatal Screening: Testing Motivations and Decision Making in the Low-Risk Population Meagan Choates, MS, CGC is the Assistant Program Director of the University of Texas Genetic Counseling Program and Assistant Professor in the Department of Obstetrics, Gynecology, and Reproductive Sciences at the McGovern Medical School at UTHealth Houston where she practices prenatal genetic counseling. She received a BS in Biochemistry and Genetics with a Minor in Psychology from Texas A&M University in 2014 and an MS in Genetic Counseling from the University of Texas Genetic Counseling Program in 2016. Meagan provides prenatal genetic counseling services at several Houston area clinics, and supervises genetic counseling students while on their prenatal rotation. In addition, she directs and teaches the genetic counseling program's Embryology course and Approaches to Genetic Counseling Research I & II. She co-directs and teaches in the program's Prenatal Genetic Counseling, Psychosocial Issues, and Psychosocial Practicum courses. She additionally oversees the genetic counseling students' Master of Science thesis research process. Her personal research interests include understanding how genetic screening and testing options are discussed, utilized, and interpreted in the clinical setting. ResearchGate profile: https://www.researchgate.net/profile/Meagan-Choates-2 In this segment we discuss: - The anecdotal observations that inspired the study, notably that low-risk and high-risk patients shared similar motivations for choosing NIPT. - That insurance coverage was the second most significant factor influencing the decision to undergo NIPT. - About 44% of participants were classified as making "uninformed decisions" despite receiving pre-test counseling from a genetic counselor. However, the term “uninformed” used by the MMIC tool can be misleading. - The challenge of balancing detailed knowledge expectations with patients' ability to make value-consistent and thoughtful decisions.   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

DNA Dialogues: Conversations in Genetic Counseling Research
#11-Dystrophinopathies: A Practice Resource from the National Society of Genetic Counselors

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Dec 26, 2024 30:40


In this episode we discuss the recent National Society of Genetic Counselor's Practice Resource on Dystrophinopathies, which was recently published in JoGC, with two of the publications' authors. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website.   Segment 1: “Genetic counseling for the dystrophinopathies- Practice resource of the National Society of Genetic Counselors”   Ann Martin, MS, CGC is a board certified genetic counselor with Parent Project Muscular Dystrophy (PPMD). Ann serves as the VP of Community Research and Genetic Services and manages a team of genetic counselors who coordinate all aspects of The Duchenne Registry and the Decode Duchenne genetic testing program. Since joining PPMD in 2011, Ann has been directly involved in all aspects of the Registry programs including collection and curation of the Registry data, clinical trial and research study recruitment, data exports, patient and family inquiries, genetic testing, and educational content on the PPMD websites. Ann represents The Duchenne Registry on TREAT-NMD's Global Data Oversight Committee, which is responsible for reviewing requests for data from the TREAT-NMD Global Registries, and serves as the DMD Subgroup Co-Lead. In addition, Ann has been a member of Sarepta Therapeutics' Advisory Board for Early Diagnosis of Duchenne since 2022. Ann is continually engaging and educating both the patient and professional community about the Registry and Duchenne and Becker research. Before joining PPMD, Ann worked as a clinical genetic counselor for 15 years at Carolinas Medical Center in Charlotte, NC, where she provided genetic counseling for pediatric and adult patients with a wide range of genetic disorders. Ann is a graduate of the University of Cincinnati Genetic Counseling Graduate Program. She is board-certified by the American Board of Genetic Counseling and is a member of the National Society of Genetic Counselors. Angela Pickart (she/her) is a licensed, certified genetic counselor practicing in the Genomics Laboratory at Mayo Clinic, performing variant interpretation, report writing and test development for neurogenetics assays. She received her Master of Science degree in Genetic Counseling at the University of Minnesota and has extensive clinical experience in pediatric, neurology, and oncology genetic counseling prior to transitioning to her laboratory role. She has been awarded the academic rank of Assistant Professor of Laboratory Medicine at the Mayo Clinic College of Medicine and Science where she serves as course co-director of the Center for Clinical and Translational Sciences Molecular Variant Evaluation Course. She is also the course co-director of the Laboratory Practicum for the Medical College of Wisconsin Master of Science Genetic Counseling Graduate Program and Adjunct Assistant Professor of the Medical College of Wisconsin School of Graduate Studies.   In this segment we discuss: - Origins and significance of the genetic counseling-specific practice resource for dystrophinopathies. - Changes in the treatment landscape due to FDA-approved therapeutics and ongoing clinical trials for dystrophinopathies. - Strategies for educating patients and families about the implications of genetic testing and diagnosis in dystrophinopathies. - Advocacy roles of genetic counselors in helping patients access the latest therapies and participate in clinical trials for DMD/BMD. - Importance of interdisciplinary collaboration in managing dystrophinopathies and the roles genetic counselors play within these teams. - Potential broader impact of the practice resource on the medical field and patient community.    Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors. Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.  For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.  Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

Eyes On The Street
Talent Attraction - with Monica Hershberger and Kate Wilson

Eyes On The Street

Play Episode Listen Later Dec 18, 2024 37:03


In this episode, we dive into the evolving landscape of talent attraction with Monica Hershberger and Kate Wilson from Role Call. As the world of work shifts, we explore how remote work has changed the game for communities and businesses striving to attract and retain top talent. Monica and Kate share their insights on the strategies that successful communities and companies are using, the role of quality of life and placemaking in talent retention, and how talent attraction efforts reflect a community's identity. Plus, we look into the crystal ball to discuss what the future holds for talent attraction strategy and economic development. 

Business RadioX ® Network
Greg Maxwell & Kate Wilson – Jackson County Schools Work Based Learning

Business RadioX ® Network

Play Episode Listen Later Dec 14, 2024


Greg Maxwell & Kate Wilson/Jackson County Schools Work Based Learning Work-Based Learning (WBL) programs connect employers and schools to offer students unique opportunities that bridge classroom learning with real-world application. These experiences, which may be paid or unpaid, help students explore career interests, assess training needs, and cultivate the skills and mindset essential for […]

Northeast Georgia Business Radio
Greg Maxwell & Kate Wilson – Jackson County Schools Work Based Learning

Northeast Georgia Business Radio

Play Episode Listen Later Dec 14, 2024


Greg Maxwell & Kate Wilson/Jackson County Schools Work Based Learning Work-Based Learning (WBL) programs connect employers and schools to offer students unique opportunities that bridge classroom learning with real-world application. These experiences, which may be paid or unpaid, help students explore career interests, assess training needs, and cultivate the skills and mindset essential for […] The post Greg Maxwell & Kate Wilson – Jackson County Schools Work Based Learning appeared first on Business RadioX ®.

DNA Dialogues: Conversations in Genetic Counseling Research
#10- Family Health History: Communication and Decision Making

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Nov 28, 2024 44:11


In this episode we discuss two papers that highlight the importance of communication around family health history and the influence of family beliefs on genetic testing decisions. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website.   Segment 1: ““Family health beliefs and cascade genetic testing in Asian families with hereditary cancer risk: “Okay, now what?””   Leena Tran began her career as a cancer genetic counselor at Cedars-Sinai in 2022, after completing her Master's of Science in Human Genetics and Genetic Counseling at Stanford University. Originally from Southern California, she is grateful to have the opportunity to work with patients and providers within the greater Los Angeles area. Leena is passionate about facilitating both provider and patient-directed education, as well as improving health care access and experiences for patients of diverse backgrounds.   In This Segment We Discuss: - The motivation behind exploring family health beliefs and cascade genetic testing in Asian families with hereditary cancer risk.. - Use of a constructivist approach in this study and rationale for choosing this methodology. - Influence of shared health beliefs within families on decisions regarding genetic testing and family communication. - Common strategies participants employed to discuss genetic testing with their relatives. - Roles genetics providers play in facilitating family discussions about cascade genetic testing.   Segment 2: “Young adults' reasoning for involving a parent in a genomic decision-making research study”   Dr. Melanie Myers is a Professor in the Division of Human Genetics, in the Department of Pediatrics, at Cincinnati Children's Hospital. She is the Co-Director of the Graduate Program in Genetic Counseling, a joint program between the University of Cincinnati and Cincinnati Children's Hospital. Dr. Myers has a background in public health genomics with specific training in genetic counseling, public health, social and behavioral sciences, and applied epidemiology. Her research interests include the impact of integrating genomics into public health research and practice. Dr. Myers's current NIH-funded work focuses on empowering adolescents from diverse backgrounds to participate in the decision-making process about learning genomic results. Myers obtained her MS in genetic counseling from the University of Cincinnati and her PhD in public health from the Johns Hopkins School of Hygiene and Public Health. www.cincinnatichildrens.org/geneticcounselingprogram   Julia Pascal is an oncology genetic counselor at Virginia Cancer Specialists. She earned her masters in genetic counseling from the University of Cincinnati genetic counseling program in 2023. Originally from the Washington DC area, Julia is grateful for the opportunity to care for cancer patients in the community where she grew up.    In This Segment We Discuss:   - Unique aspects of young adults' approaches to medical decisions compared to those of older adults. - Influence of cognitive maturity on young adults' readiness to make independent health decisions, particularly in complex fields like genomics. - Challenges encountered in designing a study that addresses both autonomous decision-making and parental influence. - Role of healthcare providers in supporting young adults' transition to independent decision-making.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dna dialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson, and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

DNA Dialogues: Conversations in Genetic Counseling Research
#9 Black Previvor and Survivor Breast Cancer Genetic Testing Experiences

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Oct 31, 2024 44:34


In this episode we discuss a research study that focuses on Black women who tested positive for a pathogenic variant associated with an increased risk for breast cancer. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website. Please note that the terminology used refers to women to reflect the language used in the paper, and all genders can have a risk to develop breast cancer. Segment 1: “A qualitative study of Black breast cancer previvors' and survivors' experiences after positive genetic testing” Malika Sud (she/her) is a genetic counselor who specializes in fetal genetics and rare disease diagnosis. She works at the Manton Center at Boston Children's Hospital, where her projects focus on discovering genetic causes of rare disease, improving access to genetic testing/counseling, and support around perinatal loss. She also cares for people with high-risk pregnancies at the Maternal Fetal Care Center at Boston Children's Hospital. Malika's work is informed by her community activism and lived experience as a woman of color - she is a longtime advocate for reproductive justice and strives to center marginalized voices healthcare and research. She teaches at the Boston University Genetic Counseling Program and serves on the NSGC J.E.D.I. Stewardship Committee in an effort to make the genetic counseling field more inclusive for patients and colleagues. Malika's Twitter handle is @malikasud   Erika Stallings is an attorney and writer based in Jersey City, NJ. In 2014 she learned that she carried a BRCA2 mutation and underwent a preventative mastectomy that same year. Since undergoing genetic counseling and testing she has worked to raise awareness of hereditary cancer with a specific focus on raising awareness in minority communities. Her writing about her experience with hereditary cancer as well as her work on health inequities has been published in NPR, O Magazine, The Cut, Jezebel and The New York Times. She is active on social media at the handle quidditch424 on X."  In This Episode We Discuss: - The origins of the study and the reasoning behind choosing this specific topic. - Erika's involvement as a patient advocate and how the team's diverse backgrounds shaped the research approach. - The five key themes uncovered in the study, with relevant participant quotes shared. - Insights on how healthcare providers can improve support for Black women with genetic results indicating higher breast cancer risk. - Discussion of the study's potential impact on future research and changes in clinical practice.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson, and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

DNA Dialogues: Conversations in Genetic Counseling Research
#8 Neurogenetics: Predictive Testing for ALS and Dynamic Coping in Pediatric Ataxia-Telangiectasia

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Sep 26, 2024 49:03


In this episode we discuss research on patient and family experiences in neurogenetics. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website.    Segment 1: “Individuals' experiences in genetic counseling and predictive testing for familial amyotrophic lateral sclerosis” Connolly Steigerwald is a certified genetic counselor at NYU Langone Health's Division of Neurogenetics and Lysosomal Storage Disorders Program in NYC, where she assists in providing evaluations and genetic counseling for those with suspected or confirmed neurogenetic disorders. Her clinic population includes those with neurodevelopmental disabilities, epilepsies, neuromuscular disorders, dementias, white matter disorders, movement disorders, and lysosomal storage disorders. Connolly holds a Master of Science in Genetic Counseling from Columbia University, where she completed a specialty rotation in neurology with a focus on neurodegenerative and neuromuscular disorders such as amyotrophic lateral sclerosis. Her research interests include predictive genetic testing, lysosomal storage disorders, and implementation of genetic counselor led clinic models. Elizabeth Harrington, MS, CGC, is an ABGC board-certified genetic counselor and Lecturer in the department of Neurology at Columbia University. Ms. Harrington received her graduate degree in human genetics and genetic counseling from the Stanford University School of Medicine.  Ms. Harrington provides genetic counseling expertise in neuromuscular, neurodegenerative, and motor neuron diseases, and specifically provides clinical genetic counseling to patients and families with ALS. In addition to her clinical and academic responsibilities, Ms. Harrington directs the ALS Families Project research study, a presymptomatic natural history study designed to understand the genetic underpinnings of genetic forms of ALS and the impact on affected families. Link to the ALS Families Project: https://clinicaltrials.gov/study/NCT03865420 In this segment we discuss: How the experiences and decision-making processes for ALS risk compare to other neurodegenerative disorders, such as Huntington disease (HD). What influences individuals at risk for familial ALS/FTD to choose predictive genetic testing, including factors like religious affiliation. The psychological impact of testing positive for ALS-associated mutations is compared to those who test negative or opt out of testing, revealing significant emotional differences. Social support networks, whether from family, friends, or healthcare professionals, are critical for those processing genetic test results or managing their risk for ALS/FTD. The importance of integrating psychological care into the predictive genetic testing process to support individuals facing the risk of neurodegenerative diseases. Segment 2: “How parents of children with ataxia-telangiectasia use dynamic coping to navigate cyclical uncertainty” Victoria Suslovitch (Tori) is a genetic counselor and works as a genomic science liaison for the rare disease team at Ambry Genetics. She educates healthcare providers about genetic testing and genomic medicine, and aims to advance access, equity, and quality of genetics services. Prior, Victoria was a research genetic counselor at Boston Children's Hospital, for a study that develops genomically targeted therapies for children with rare neurological diseases. In this role, she worked closely with families of patients with ataxia telangiectasia. She received her Master of Science in Genetic Counseling degree from Boston University, and is certified by the American Board of Genetic Counseling.  Julia Schiller works as a cancer genetic counselor at AdventHealth in Parker, CO. She attended Drake University for her undergraduate degree, and Boston University School of Medicine for her genetic counseling degree and is certified by the American Board of Genetic Counseling. Originally from Minnesota, she now enjoys all the outdoor adventures Colorado has to offer with her partner, Adam, and their dog, Sprocket. Her passionate for health equity and preventative care drive her to create a space for patients where they feel empowered in their own healthcare. Link to the Ataxia Telangiectasia Children's Project (ATCP): https://atcp.org In this segment we discuss: Ataxia-Telangiectasia (A-T) - a pediatric movement disorder characterized by ataxia, immune deficiencies, and a higher risk of cancer, with symptoms often starting in early childhood. The similarities and differences in parental experiences as well as emotional and clinical challenges faced by families The five key themes that emerged: changes in parental responsibilities, shifts in family identity, evolving coping strategies, continuous uncertainty, and the importance of support from various sources. A-T's progressive nature meant that coping and identity changes were ongoing, with parents turning to connections with family, medical teams, and other A-T families. Parents described emotional, logistical, and financial challenges associated with the diagnosis, highlighting the need for supportive and understanding healthcare providers.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson, and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.

Britflicks.com Podcast
3 Films That Have Impacted Everything In Your Adult Life with PROSPECTS author & CALL IT! Co-founder Kate Wilson

Britflicks.com Podcast

Play Episode Listen Later Sep 3, 2024 63:54


Screenwriter Stuart Wright talks to former film producer Kate Wilson about her debut novel PROSPECTS & the workplace culture app CALL IT! and "3 Films That Have Impacted Everything In Your Adult Life" BUGSY MALONE (1976)BACK TO THE FUTURE (1985)THE ACCUSED (1988)The novel PROSPECTS is out now https://www.prospects-novel.comFor more about the workplace culture app CALL IT! https://www.callitapp.org/about  "3 FILMS THAT HAVE IMPACTED EVERYTHING IN YOUR ADULT LIFE" is a podcast by screenwriter Stuart Wright that explores the transformative power of cinema. From emotional masterpieces to thought-provoking classics, each episode delves into the films that have had a profound impact on our personal growth and perspective. Through engaging storytelling, critical analysis, and cultural commentary, Stuart aims to uncover the lasting influence that movies have had on his guests. Please join him on an emotional journey through the world of film and discover how just three movies can change the direction of a life, cement memories you will never forget or sometimes change how you see the world."CreditsIntro/Outro music is Rocking The Stew by Tokyo Dragons (www.instagram.com/slomaxster/)Podcast for www.britflicks.com https://www.britflicks.com/britflicks-podcast/Written, produced and hosted by Stuart WrightSupport this podcast at — https://redcircle.com/britflicks-com-podcast/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

DNA Dialogues: Conversations in Genetic Counseling Research
Simulation and Leadership Development in Clinical Training for Genetic Counselors

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Aug 29, 2024 45:42


Guests include Megan Cho to discuss her paper, “Beyond multiple choice: Clinical simulation as a rigorous and inclusive method for assessing genetic counseling competencies” as well as Amanda Polanski and Ashley Kuhl to discuss their paper, “Leadership development in genetic counseling graduate programs.”   In this episode we discuss clinical training by exploring papers that discuss clinical simulation and leadership development. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website.    Segment 1 “Beyond multiple choice: Clinical simulation as a rigorous and inclusive method for assessing genetic counseling competencies”   Megan is the Associate Director of the Johns Hopkins/NIH genetic counseling training program.  Prior to that, as the Research Program Manager at GeneDx, she created and led a team working to discover and describe rare genetic disorders.  Megan has practiced clinically at Columbia/New York Presbyterian Hospital and was also adjunct teaching faculty at the Sarah Lawrence College genetic counseling program.  She serves as the Co-Chair of the GCEA Education Committee, past Chair of the NSGC Outcomes Committee, past Chair of the NSGC Research Special Interest Group, and has been a member of various task forces including the NSGC Research Task Force and the ACGC Practice Based Competencies task force.   In this segment we discuss:  Challenges posed by standardized tests in ensuring equity. Alternative methods proposed in the article for assessing competence in new genetic counseling graduates and trainees. Contrasts between formative and summative assessments in simulation-based education. Differences in assessment difficulty and methodology between genetics knowledge and counseling competence. Barriers and challenges in implementing simulation in large-scale certification exams in other fields.   Segment 2 “Leadership development in genetic counseling graduate programs”   Amanda Polanski is a certified genetic counselor at Minnesota Perinatal Physicians. She graduated from the University of Wisconsin-Madison Master of Genetic Counselor Studies program in 2023, and her research focused on characterizing the role of leadership development in genetic counseling graduate programs. Previously, she has done research on identification and diagnosis of familial hypercholesterolemia through the University of Minnesota. She currently enjoys providing compassionate and inclusive care to prenatal patients alongside other dedicated providers.   Ashley Kuhl, MS, CGC, is the Assistant Program Director at the Master of Genetic Counselor Studies program at the University of Wisconsin-Madison and an assistant professor (CHS) in the Department of Pediatrics. She enjoys working with genetic counseling and other health professions learners in various capacities and with patients and families in the UW Biochemical and Medical Genetics clinics at the Waisman Center. She began her clinic work in 2013 after completing her master's degree in Medical Genetics from the UW-Madison Genetic Counseling Training Program.   In This Segment  We Discuss: Enhancement of genetic counselors' impact through leadership skills. Importance of intentional leadership development in advocating for patients and the profession, and the role of genetic counseling in broader healthcare advocacy efforts. The variation in the definition and understanding of leadership among program leaders, and its impact on leadership development within genetic counseling (GC) programs. Role of faculty in driving leadership development and effective strategies employed to instill leadership skills in GC students. Identification of current leadership development as a top area for improvement and actionable steps for programs to address this gap.   [Plug guest website and SM]   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian.   

DNA Dialogues: Conversations in Genetic Counseling Research
#6 Exploring Abortion Care: Reproductive Justice and Healthcare Professional Training in the Face of Changing Legislation

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Jul 25, 2024 31:35


Guests include Gina Sanchez to talk about her paper, “Status of abortion curriculum in genetic counseling: Survey of graduate programs and recent graduates in the United States” and Dr. Holly Rankin to discuss her paper, “Termination counseling among US perinatal genetic counselors in the setting of second trimester fetal anomalies.”   Segment 1: Gina Sanchez, MS, MB(ASCP), CGC is a genetic counselor and Instructor in the Department of Obstetrics, Gynecology, and Reproductive Sciences at the McGovern Medical School at The University of Texas Health Science Center at Houston. She received a BS in Zoology from Texas Tech University in 2012, a MS in Molecular Pathology from Texas Tech University Health Sciences Center in 2013, and a MS in Genetic Counseling from The University of Texas Genetic Counseling Program in 2022. Gina provides prenatal genetic counseling services in both English and Spanish at several Houston area clinics. She is a member of the National Society of Genetic Counselors and the Texas Society of Genetic Counselors. Gina's research interests include genetic counseling education and increasing access to genetic counseling care for the Spanish-speaking patient population. In this segment, we discuss: Assessment of the abortion curriculum in genetic counseling graduate programs and the study participants. Variability in the amount and types of abortion training across surveyed programs. Factors influencing the training provided. Greater satisfaction and preparedness among graduates from programs with a dedicated abortion curriculum. Notable discrepancies between responses from recent graduates and program representatives. Key topics highlighted as important parts of abortion education. Variability in clinical training as a barrier to abortion education and potential solutions to standardize this education. Segment 2: Dr. Holly Rankin received her undergraduate degree in anthropology, graduating summa cum laude, from the University of California, Los Angeles. She completed her medical education at Sidney Kimmel Medical College at Thomas Jefferson University, Philadelphia where she was inducted into the Gold Humanism and the Alpha Omega Alpha Honor Societies. Dr. Rankin completed her residency training in Obstetrics and Gynecology at Johns Hopkins University, Baltimore. She received the Ryan Program Excellence in Family Planning Award at the end of residency training. Dr. Rankin is excited to be a Complex Family Planning fellow at UC Davis and plans to focus her career on providing abortion and contraceptive specialty care to underserved, rural communities. In this segment, we discuss: The impact of state laws and location on counseling and termination options. Differences between genetic counselors and other healthcare providers in handling these cases. Balancing patient autonomy with counseling challenges. How reproductive justice affects the discussion of termination options, especially with changing abortion laws.   Follow us on Instagram @dnadialoguespodcast and on LinkedIn at Journal of Genetic Counseling.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Sydney Arlen.  

DNA Dialogues: Conversations in Genetic Counseling Research
#5 Non-Invasive Prenatal Screening (NIPS) and Fetal Sex Prediction

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Jun 27, 2024 48:30


In this episode we discuss navigating non-invasive prenatal screening, also known as non-invasive prenatal testing, by reviewing two articles covering genetic counseling insights, informed consent challenges, and inclusive practices. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website.    Segment 1 “Genetic counseling for fetal sex prediction by NIPT: Challenges and opportunities”   Chelsea Stevens is a clinical and research genetic counselor in the cardiovascular genetics clinic at Brigham and Women's Hospital. She has been working at BWH since 2022 and works primarily on projects aimed to understand genotype/phenotype relationships in cardiomyopathies. The publication we will be discussing today is the result of Chelsea's capstone project during her genetic counseling graduate education at the MGH Institute of Health Professions. She is from Connecticut and has been living in Boston for the past 6 years and loves working in a city with a strong genetic counseling network.   Courtney Studwell  is a laboratory genetic counselor in the Center for Advanced Molecular Diagnostics (CAMD) at Brigham and Women's Hospital. In the cytogenetics laboratory, Courtney serves as a liaison to clinical providers ordering genetic testing and helps to implement updated testing protocols that reflect patient needs and the evolving landscape of genetic testing technologies. In addition to working in the laboratory, Courtney also sees patients in the Center for Fetal Medicine and Reproductive Genetics at Brigham and Women's Hospital and is passionate about providing high-quality genetics care to patients at all stages of their reproductive process.   In this segment, we discuss: An overview of NIPS, its evolution and recommendations on utilizing it as a screening tool Insights into study participants' clinical practices and training regarding inclusive language for sex and gender Challenges and misconceptions faced by providers when offering NIPS Recommendations to address issues related to challenges and misconceptions   Segment 2 "What knowledge is required for an informed choice related to non-invasive prenatal screening?"   Jill Slamon is an Assistant Professor in Obstetrics and Gynecology in the Vanderbilt School of Medicine and the founding Assistant Program Director of the Vanderbilt University Master of Genetic Counseling Program. Jill has over 12 years of clinical experience in reproductive and prenatal genetic counseling with unique experiences in preconception counseling in the queer community. Her research interests focus on topics ranging from genetic counseling education and training, genetic counseling outcome measures, patient-reported outcome measures, and experiences of queer patients seeking preconception and prenatal care. Jill earned a Bachelor of Science from the Lyman Briggs College at Michigan State University. She then earned a Master of Art in Teaching from National Louis University and a Master of Science in Genetic Counseling from Northwestern University in Chicago, IL.   In this segment, we discuss: The challenges in informed consent and fetal sex prediction in NIPS Professional guidelines related to informed consent and NIPS The multidimensional measure of informed choice (MMIC) Impact on decisional conflict among patients offered NIPS   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. 

Y on Earth Community Podcast
Episode 164 – Kate Wilson, Vail Resorts, VP of Environmental & Social Responsibility

Y on Earth Community Podcast

Play Episode Listen Later Jun 20, 2024


Kate Wilson - Vail Resorts - Y on Earth Community Podcast The post Episode 164 – Kate Wilson, Vail Resorts, VP of Environmental & Social Responsibility first appeared on Y on Earth Community.

DNA Dialogues: Conversations in Genetic Counseling Research
#4 Discussing Gender Inclusive Terminology and Gender-Affirming Hereditary Cancer Care

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later May 30, 2024 43:08


In our fourth episode, we delve into the importance of gender-inclusive language in genetic counseling and the specific challenges transgender and gender-diverse (TGD) individuals face in accessing hereditary cancer care. You can find these articles in a special virtual issue of the Journal of Genetic Counseling which is free and open access for the month of June. You can find the Journal of Genetic Counseling webpage via onlinelibrary.wiley.com or via the National Society of Genetic Counselors website.    Segment 1 “Use of gender-inclusive language in genetic counseling to optimize patient care”   Heather Motiff graduated with a B.S. in Psychology from the University of Wisconsin-Whitewater in 2006. She has extensive experience working as a crisis response advocate and co-facilitating support groups for survivors of intimate partner violence. Heather discovered her interest in genetic counseling during her first pregnancy in 2010. She has served as a Community Resource Specialist and contributed significantly to gender-affirming care initiatives during her graduate studies at UW-Madison. Heather is now an oncology genetic counselor at SSM Health Cancer Care in Madison, WI, and is dedicated to providing inclusive, quality healthcare and genetic services.   In this segment we discuss: Specific examples and terms used in gender-inclusive language. Comfort levels of genetic counselors with using gender-inclusive language. Findings from thematic analyses on the use of gendered language and its impact on patient care. Suggestions for additional training resources for healthcare professionals. Segment 2 “Experiences of hereditary cancer care among transgender and gender diverse people: “It's gender. It's cancer risk…it's everything”   Sarah Roth is a genetic counselor and a PhD candidate in Anthropology at Johns Hopkins University. She is a BRCA1 carrier whose research focuses on the experiences of patients, communities, and providers in cancer care and genomic medicine. Sarah has been a founding editor of Tendon at JHU's Center for Medical Humanities & Social Medicine, a contributing writer at Synapsis: A Health Humanities Journal, and a recent predoctoral fellow in Bioethics at the National Institutes of Health.   In this segment, we discuss: Challenges faced by TGD individuals in accessing hereditary cancer care. Participants' perspectives on gendered language in healthcare. Actionable recommendations for healthcare providers to support TGD individuals with hereditary cancer syndromes.   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. 

Herbert Smith Freehills Podcasts
Real Estate EP12: Extending corporate liability under the Building Safety Act 2022

Herbert Smith Freehills Podcasts

Play Episode Listen Later May 20, 2024 19:20


Can the corporate veil be protected? In our latest podcast, Kate Wilson, a Professional Support Consultant in our London Real Estate team, is joined by Alex Wright, a Senior Associate in our Corporate Real Estate team, and Somers Brewin, Vice-President in the Transactional Risk team at Lockton, to discuss the potential liabilities that can arise on corporate acquisitions pursuant to the Building Safety Act 2022, and the ways in which the insurance market is adapting to address these risks.

DNA Dialogues: Conversations in Genetic Counseling Research
#3 Diagnostic Odysseys with Secondary and No Primary Findings

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Apr 25, 2024 42:42


To celebrate DNA Day we are releasing our April episode exploring concepts related to the diagnostic odyssey, whole genome sequencing, and results returned.    Segment 1: A Journey of Hope and Resilience   In our first segment, we delve into the research conducted by Celine Lewis, focusing on the emotional impact of receiving a "no primary finding" (NPF) result from genome sequencing. This recent JoGC paper is titled, “The disequilibrium of hope: A grounded theory analysis of parents' experiences of receiving a “no primary finding” result from genome sequencing.”   Celine's study uncovers the multifaceted journey of parents grappling with the absence of a definitive diagnosis for their children. Through grounded theory analysis, two primary themes emerge: "Striving to Solve the Unsolved Puzzle" and "Navigating Hope, Lost then Found." These themes encapsulate the oscillating emotions of hope, disappointment, and resilience experienced by parents amidst the diagnostic odyssey.   Dr. Celine Lewis is a behavioural scientist working in the field of genetic and genomic medicine. She is currently at University College London Institute of Child Health, and is an NIHR Advanced Fellow. Her work focuses on how patients and families relate to, communicate and make decisions around personal genetic information, and the subsequent behavioural, psychological and social outcomes.    Through her research, Celine has worked with a range of key stakeholders including researchers in the UK and abroad, healthcare professionals and policy makers as well as voluntary organisations, patients and families. She is regularly invited to present at UK and international conferences and meetings and is increasingly asked to present her research findings to organisations such as NHS England and the Department of Health.   Key Insights from Segment 1: - The importance of understanding the emotional dimensions of genetic testing, especially for families receiving inconclusive results. - The dynamic role of hope as both a motivator and a coping mechanism throughout the diagnostic journey. - Suggestions for pre and post-test counseling strategies to support families navigating genomic testing, emphasizing the significance of managing expectations and fostering adaptive hope.   Segment 2: Systematic Review of Secondary Findings   In our second segment, we explore a systematic review conducted by Lucas Mitchell and Dr. Amanda Willis, focusing on the uptake and outcomes of returning secondary findings to research participants. This recent JoGC article is titled, “Systematic review of the uptake and outcomes from returning secondary findings to adult participants in research genomic testing.”   Through rigorous analysis of existing literature, Lucas and Amanda illuminate key insights into the prevalence of secondary findings and their psychological, medical, and ethical implications. Their review underscores the critical role of researchers in navigating the complexities of result return, highlighting considerations for enhancing participant engagement and support.   Lucas Mitchell is a research genetic counsellor at the Garvan Institute of Medical Research in Sydney, Australia. He contributes to the My Research Results genetic counselling platform, an evidence-based service that supports researchers in delivering actionable research genomic findings to participants nationwide. With a Master of Genetic Counselling from the University of Technology Sydney, Lucas is passionate about helping participants and their families in understanding their research findings and facilitating access to ongoing support. Lucas's current research interests lie within the application of genomics and returning secondary findings, and the intersection of genetic healthcare with diverse communities and improving inclusion and accessibility.   Dr. Amanda Willis is a research genetic counsellor at the Garvan Institute of Medical Research. After completing a Master of Genetic Counselling in 2013, Amanda worked as a cancer genetic counsellor in Australia and the UK and completed a PhD in 2018. Amanda's current work is centred around the My Research Results program, developed to help research participants access their genetic information. Amanda provides genetic counselling to research participants who receive a genetic result and conducts research to understand the experiences of these participants. Through this work, she aims to increase access to genomic information and improve outcomes for research participants and their families.   Key Insights from Segment 2: - The significance of secondary findings in research genomic testing and the need for comprehensive strategies to address participant needs. - Key findings regarding the uptake of secondary findings and diverse outcomes experienced by research participants. - Implications for researchers, healthcare providers, and policymakers in optimizing result return processes and promoting participant well-being.   As we conclude our exploration, it becomes evident that genetic testing transcends the realm of science, delving deep into the intricacies of human emotions and resilience. Through the insightful research of our guests, we gain valuable insights into the lived experiences of individuals navigating genetic testing, offering a glimpse into the profound impact of hope, disappointment, and adaptive coping mechanisms.    Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Nominate your articles, or a colleagues, here and we may feature it on the show! Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. 

DNA Dialogues: Conversations in Genetic Counseling Research
#2 Intersection of the Disability Community and Genetic Counseling Training/Practice

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Mar 30, 2024 45:19


In our second episode, we explore two recent articles focusing on the intersection of the disability community and genetic counseling training and practice.    Segment 1: “Disability education and implications for genetic counselor training”   Lauren Douglas (she/her) serves as an oncology genetic counselor and supervisor for graduate student rotations at MHealth Fairview in Minneapolis, MN. She received a degree in Genetic Counseling from the University of Texas MD Anderson Cancer Center UTHealth Graduate School of Biomedical Sciences in 2021. Outside of work, she finds joy in practicing yoga, enjoying the outdoors, and cheering on her favorite Minnesota sports teams.   Chelsea Wagner (she/her) is a seasoned genetic counselor specializing in prenatal and reproductive health. She is the outgoing chair for NSGC's Prenatal Special Interest Group and serves as reproductive health expert for NSGC's media panel. She is currently a Lead Genetic Counselor at BillionToOne. Chelsea identifies as a person with a disability courtesy of a brain injury acquired in 2019 and her experience living with chronic illness for almost two decades.    Segment 2: “Experiences of genetic counseling students with disabilities and chronic illnesses: A qualitative study”   Rachel Epstein (she/her) is a 2022 graduate of the Boston University Genetic Counseling Program. She is currently working as a genetic counselor in the Neaman Center for Personalized Medicine at Endeavor Health in Evanston, IL, where she works primarily in adult cancer genetics.   During the episode we recommending the following resources: NSGC Member Webinar Series: 2023 Community Conversations  Disability in Genetic Counseling Group on Instagram @disabilitygc or email disabilitygc@gmail.com   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian.

Moving Forward, Giving Back
The ROI of Social Impact

Moving Forward, Giving Back

Play Episode Listen Later Mar 28, 2024 27:02


ROI serves as an important benchmark for all life sciences companies, whether it involves a pipeline candidate, new products, or marketing strategies. But what does ROI have to do with creating a culture of care?In this episode of Moving Forward, Giving Back, our guests Troy Wilson, CEO of Kura Oncology, Kate Wilson, President of the Gilead Foundation, Matt Gline, CEO of Roivant, and Tom Croce, Vice President of Global Patient Advocacy at Jazz Pharmaceuticals join host Morgan Berman, Executive Director of Life Science Cares Philadelphia, to explore how creating a culture of care ensures overall business success, achieves a competitive advantage within their specific business landscape, creates a supportive work environment for employees, and maintains a genuine, distinct corporate identity.This is an insightful, information rich conversation on an essential topic that you do not want to miss. To learn more go to lifesciencecares.org.

DNA Dialogues: Conversations in Genetic Counseling Research
#1 Rare Disease Family Experience (Chromosome 18 Conditions and Pediatric Oncology)

DNA Dialogues: Conversations in Genetic Counseling Research

Play Episode Listen Later Feb 29, 2024 43:13


Welcome to the first episode of DNA Dialogues! Today is February 29th, 2024. It is a leap year, so today marks an extra special rare disease day.    Rare diseases can impact so many people - from patients themselves, to families, to broader communities. To celebrate rare disease day, we are going to dive into two recent articles from the Journal of Genetic Counseling that showcase the rare disease experience. The following interviews provide insight into the wider impact of rare disease, with a special focus on families.   Segment 1: “Understanding type and quality of relationships between individuals with chromosome 18 syndromes and their siblings”   Dr. Catherine Larson joins us in the first segment to talk about her recent article titled, “Understanding type and quality of relationships between individuals with chromosome 18 syndromes and their siblings”.    Dr. Catherine Larson is a Child and Adolescent Psychiatrist and a sibling to Elizabeth, who has a Chromosome 18 deletion. After earning her undergraduate degree, she worked as a research assistant at the Chromosome 18 Research Center, where she began her research on Sibling relationships. Dr. Larson earned her Medical Degree from the University of Texas School of Medicine at San Antonio. She then went on to complete a General Psychiatry Residency Program, followed by a Fellowship in Child and Adolescent Psychiatry at The University of Texas at Austin, Dell Medical School. As a practicing psychiatrist, she opened her private practice in Austin, Texas, and she also returned to join the research team at the Chromosome 18 Research Center.   Dr. Catherine Larson is double Board Certified by the American Board of Psychiatry and Neurology in General Psychiatry and Child and Adolescent Psychiatry. Dr. Larson earned her Medical Degree from the University of Texas School of Medicine at San Antonio. She then went on to complete a General Psychiatry Residency Program, followed by a Fellowship in Child and Adolescent Psychiatry at The University of Texas at Austin, Dell Medical School. In addition to her private practice, she is currently an Adjunct Assistant Professor at The University of Texas Health School of Medicine at San Antonio.  Segment 2 “Families' experiences accessing care after genomic sequencing in the pediatric cancer context: ‘It's just been a big juggle'”   Authors Sarah Scollon and Blake Vuocolo talk about their recent Journal of Genetic Counseling paper in the pediatric cancer space.    Sarah Scollon is an Assistant Professor in the Department of Pediatrics at Baylor College of Medicine and certified genetic counselor for the Texas Children's Hospital Cancer Genetics and Genomics Program. She has served in dual clinical and research roles across the course of her career. Her research interests engage the overarching themes of (1) adaptation of genetic counseling practice to implement evolving technologies (2) optimization of patient-provider communication and education and (3) equity and inclusion for diverse populations in genetic medicine and research. Ms. Scollon has had a longstanding dedication to the care of children and families affected by cancer. She is an advocate for including genetic counseling into pediatric cancer care. She works to educate others on the role genetics and genomics can play in the care of patients with pediatric cancer and their families both from a clinical and psychosocial standpoint.   Blake Vuocolo is a certified research genetic counselor in the Department of Molecular and Human Genetics at Baylor College of Medicine. She graduated from the Baylor College of Medicine Genetic Counseling Program in 2022, and her thesis work focused on access to follow-up hereditary cancer care in underserved pediatric populations through the KidsCanSeq study. Currently, her work focuses on exome and genome sequencing of medically underserved populations with undiagnosed diseases throughout Texas. Ms. Vuocolo is passionate about finding sustainable ways to improving genomic health equity worldwide. Her interests include exploring access barriers to receiving genomic care in different healthcare contexts and improving genetics education for non-genetics healthcare providers in under resourced regions of the country and beyond.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. 

Your Retirement Planning Simplified
Ep #67: Peace of Mind: The Power in Pre-Planning and Prepaying Your Funeral

Your Retirement Planning Simplified

Play Episode Listen Later Dec 14, 2023 21:58


Joe speaks with Kate Wilson, Associate Advisor at Matthews + Associates, about an essential topic of estate planning: preplanning and prepaying for your funeral.   Kate stresses the importance of thoughtful consideration of one's end-of-life wishes, encouraging you to document your preferences and keep them alongside your estate planning documents. While the topic may not be the most lighthearted, Joe and Kate offer practical insights, aiming to empower listeners to make informed decisions about their final arrangements.    Read the full show notes and find more information here:  EP 67 Show Notes

#GINNing Podcast
The Rebel

#GINNing Podcast

Play Episode Listen Later Oct 20, 2023 19:14


This is the story of an engineering rebel who embraced Auburn sight unseen, fell in love with Aubie, broke Oxford's generational curse on her family, and tackled the greatest challenges for green infrastructure. Eat your heart out, Ole Miss.Listen to the award-winning #GINNing gang's interview with junior Kate Wilson, the new president of Auburn's chapter of the American Society of Civil Engineers (ASCE).

The Forgotten Podcast
Episode 205: Navigating Hardship & Pursuing a Dream (w/ Kate Wilson & Secilia Bedolla)

The Forgotten Podcast

Play Episode Listen Later Oct 16, 2023 36:46


For the month of October, applications are open for YOU to become a TFI Advocate, bridging the gap between foster care agencies and churches right in your local community. This only happens twice a year! Learn more and apply here. If you've ever had a dream in your heart, you know there can be a lot of steps to make it a reality. Along the way, you will likely encounter hardships, delays, and doubts. I have a special treat for you today as we have not one, but two guests! Kate Wilson is the Founder and CEO of Foster + Heart, a Non-Profit in Idaho that is dedicated to igniting the community to meet the needs of children in foster care. Even though the journey was long towards realizing her dream, God set things in motion to not only place that calling on her life early on but also see it come to fruition. Secilia “Cece” Bedolla is a former foster youth and team member at Foster + Heart. Experiencing an incredibly challenging and traumatic upbringing, Cece's story is a story of discovering hope in the midst of hardship. I was so honored to have this conversation and I hope it's an encouragement to you this week! Listen in as they share how God guided their circumstances and gave them the experience to meet the needs of children in foster care today. Show Notes: https://theforgotteninitiative.org/wilson-bedolla-205/

Spoken Label
Kate Wilson (Spoken Label, August 2023)

Spoken Label

Play Episode Listen Later Aug 26, 2023 38:43


Sky News Daily
Sex, Lies and Police spies: The Met's undercover police scandal 

Sky News Daily

Play Episode Listen Later Jun 30, 2023 19:16


The first report from a seven-year inquiry into undercover policing in England and Wales has been published, finding that undercover policing deployments were unjustified and would have been "brought to a rapid end" if the public had known what was going on. First commissioned in 2015 by then Home Secretary Theresa May, the investigation is aiming to discover the truth about undercover policing over the past 50 years and provide recommendations for the future. On the Sky News Daily with Niall Paterson, our Home Editor Jason Farrell explains the history of ‘spycops' that led to the inquiry, and Kate Wilson, an environmental activist who was deceived into a two-year intimate relationship by an undercover police officer in 2003, talks about her experience. Producer: Soila Apparicio Interviews producer: Alex Edden Editor: Danielle Weekes-Chilufya

england police scandals wales spies undercover sex lies kate wilson home secretary theresa may sky news daily niall paterson
Slow Radio
Sounds of the Earth - Brazilian Rainforest and Banjo Frogs

Slow Radio

Play Episode Listen Later Mar 29, 2023 30:47


Relax with a calming mix of music and natural sounds, from the Atlantic rainforests of Brazil to Eastern Banjo Frogs in Adelaide, Australia. Plus a dawn chorus in Cornwall and chaffinches in Noja, Northern Spain. Recordings by BBC Radio 3 Sunday Breakfast listeners Bob Castell, Kate Wilson, Peter Halmkin and Kevin Cox.

DJs, résident.e.s et festivals [Tsugi Radio]
The Manchester Series : GOMID

DJs, résident.e.s et festivals [Tsugi Radio]

Play Episode Listen Later Mar 11, 2023 84:15


Caroline Harleaux & Lee Andrews en direct de Manchester ! Leurs invités ce mois-ci sont Iyun et Sam, un duo qui opère sous le nom de GOMID, et mixent electronica, beats, hip-hop et folklore, avec une intensité fascinante.TracklistGOMID - GOGOMID - Tongueoyamao – IrohaLil Yachty – running out of timeClub Eat – BlueBABYXSOSA – MONEY BAGS IN THE TRUNKDreams – Chill Lo-fi Algorithms To Study ToIceboy Violet – this ain't rain it's an avalancheCOI LERAY – FLY SH1TLEVI CARTER – NOT TRYNA LINKQOVŌP – So ColdYoung Fathers – Tell SomebodyBuju - Many Ways feat. WizkidIan Isiah – 247Sachio Fujioka, Manchester Camerata, John Barrow, Joe Houghton, Kate Wilson, Jonathan Price & Kyoko Tabe – Dream Colored Mobile II, Op. 58aLianne Le Havas – Read My MindJapan – GhostsFlorence Sinclair – snow bunnyOZOMATECUHTLI – TEOTIHUACANOSPerfume Genius & Nídia – Moonbend (Nídia Remix)Chunky – Dancin' on TablesAir Max '97 – Work To LiveSeyi Vibez – Para Boi Hébergé par Acast. Visitez acast.com/privacy pour plus d'informations.

The Bad + Bitchy Podcast
Dispatches from the Olympics of Tech

The Bad + Bitchy Podcast

Play Episode Listen Later Jun 24, 2022 21:24


Erin is joined by Kate Wilson, managing editor of the Vancouver Tech Journal, to check-in on Collision Conference, the Olympics of Tech. More than 340 women-led startups were featured 39% of speakers were women, up 9% from 2019 Over 44% over attendees were women 2022 featured the Indigenous Atendee Program for the first time

4BC Drive with Mark Braybrook
Election advertising: What works and what doesn't

4BC Drive with Mark Braybrook

Play Episode Listen Later May 18, 2022 6:57


Vaxa Group communications specialist Kate Wilson explains more. See omnystudio.com/listener for privacy information.

Transatlantic Crime
Episode 105: Women Who Fought Back UK

Transatlantic Crime

Play Episode Listen Later May 16, 2022 50:02


This week it's Talicza's turn to share a UK story where women fought back and also this week, Talicza and Rachael are in the same room for the first time! From Los Angeles, Talicza tells the story of Kate Wilson and how she, along with several other women, fought against Mark Kennedy and other police officers after they were deceived in an undercover operation. Like what you're hearing? Leave a rate and review in Apple Podcasts and let us know what you think by visiting us on our socials: Instagram: @transatlanticcrime Twitter: @transatcrimepod Facebook: facebook.com/transatlanticcrime Patreon: patreon.com/transatlanticcrime Want to support us even more? Check out our merch store: https://www.redbubble.com/shop/ap/59763237 And our booklist: https://bookshop.org/shop/transatlanticcrime

SAP Learning Insights
RISE with SAP - with Kate Wilson

SAP Learning Insights

Play Episode Listen Later Feb 23, 2022 25:15


David Chaviano welcomes Kate Wilson again. This time she gives an overview on what RISE with SAP is and what learning content is available on SAP Learning Hub and other sources. Kate is an experienced trainer and learning room lead on SAP Learning Hub with focus on SAP S/4HANA private and public cloud edition as well as RISE with SAP.

Transmission Interrupted
Kids Coping With COVID-19

Transmission Interrupted

Play Episode Listen Later Sep 29, 2021 15:21


The COVID-19 pandemic continues to affect the pediatric community. With the return to school and the surge in pediatric COVID-19 cases, young children face challenges they've never met before, both at school and home. Join host Dr. Vanessa Raabe and special guest Abby Hollis, a Certified Child Life Specialist at Children's Healthcare of Atlanta, as they discuss the challenges facing young children today and highlight various strategies and resources that parents, teachers, and healthcare workers can use to help kids cope with COVID-19 during the pandemic.Questions or comments for NETEC? Contact us: info@netec.orgFind us on the web: netec.orgHostVanessa N. Raabe, MDAdult and Pediatric Infectious Disease Physician at NYU Grossman School of MedicineGuestAbby HollisCertified Child Life Specialist at Children's Healthcare of AtlantaResourcesAssociation of Child Life Professionals: https://www.childlife.orgCoronavirus, a Book for Children, written by Elizabeth Jenner, Kate Wilson and Nia Roberts. FREE DOWNLOAD at https://stayhome.candlewick.comNETEC COVID-19 Novel Coronavirus Resources: https://repository.netecweb.org/exhibits/show/ncov/ncovNETEC COVID-19 Webinar Series Playlist: https://www.youtube.com/playlist?list=PL5JyGXQ8MP0TZXU2Ldy-jzjLuUNfFX8JZNETEC Resource Repository: https://repository.netecweb.org

Spycops Info
Episode 17: Kate Wilson & the IPT Part 3

Spycops Info

Play Episode Listen Later Sep 26, 2021 33:35


This third part on the legal action taken relating to undercover police officer Mark Kennedy at the Investigative Powers Tribunal. This episode looks at the actual trial of Kate Wilson's Human Right's claim at the High Court. Part 1 (Episode 6): https://soundcloud.com/spycops/episode-6-kate-wilson-the-ipt-part-1 Part 2: (episode 16): https://soundcloud.com/spycops/kate-wilson-the-ipt-part-2 Look out for the 4th and final part of this mini-series once the judgement of the Tribunal is handed down. hopefully before the end of 2021.

Spycops Info
Episode 16: Kate Wilson & the IPT Part 2

Spycops Info

Play Episode Listen Later Sep 22, 2021 34:21


Kate and Ben return to talk more about the case Kate brought to the Investigative Powers Tribunal, you can hear part one here: https://soundcloud.com/spycops/episode-6-kate-wilson-the-ipt-part-1 You can learn about her case at the Investigative Powers Tribunal: https://campaignopposingpolicesurveillance.com/kate-wilson-case-exposing-institutional-sexism-spycops/ Follow Kate on twitter: https://twitter.com/fruitbatmania Please support the pod by ordering some stickers: https://ko-fi.com/s/df86432870

Spycops Info
Episode 14: Conversation With Ben & Kate Wilson

Spycops Info

Play Episode Listen Later Sep 3, 2021 43:51


Core Participants in the Undercover Policing Inquiry Kate Wilson and Ben have a wide ranging chat with their neighbour Brian on the topic. This episode serves as useful introduction to those not familiar with the details of the whole issue. For Kate Wilson's story check out: https://policespiesoutoflives.org.uk/our-stories/kates-story/ Kate and Ben first appeared in episode 6 talking about the legal case Kate brought to the Investigative Powers Tribunal: https://soundcloud.com/spycops/episode-6-kate-wilson-the-ipt-part-1

Awakening Consciousness With Asher Cowan And Jesse Bayer
Awakening Consciousness with Asher and Jesse | EP50: Discovering Who We Are with Dr. Kate Wilson

Awakening Consciousness With Asher Cowan And Jesse Bayer

Play Episode Listen Later Aug 4, 2021 59:32


We have an exciting episode for everyone today! We are joined by Dr. Kate Wilson. Dr. Wilson is a holistic healthcare practitioner; she deals with manual osteopathy (the structure of the body.) Today we talk about who we are- not just a physical 3D body, but cover the mind, body, and soul. To learn more about Dr. Kate Wilson visit her website at: http://integralhealingwellness.com/Follow Us:Facebook https://www.facebook.com/AwakeningConsciousnessAJInstagram https://www.instagram.com/awakeningconsciousnessaj/YouTube https://www.youtube.com/channel/UCljw7ae6Nrwfi8oJ30r14YwBitchute https://www.bitchute.com/channel/zdtnY6dXNSJr/Brand New Tube https://brandnewtube.com/@AwakeningConsciousness_AJRumble https://rumble.com/c/c-891787Gab https://gab.com/AwakeningConsciousnessAJMeWe https://mewe.com/p/awakeningconsciousnesswithasherandjesseJoin our Telegram Chat: https://t.me/AwakeningConsciousness_AJOur Websites:https://drtomcowan.com/https://www.drcowansgarden.com/https://www.abecuador.com/

Alt Psych
Harmony

Alt Psych

Play Episode Listen Later Jun 20, 2021 54:07


Join Dr. Mark Sylvester and Dr. Richard Schulman as they speak with Dr. Kate Wilson on how the world went crazy in the last year and how we're going to restore it to sanity. It's a sweet discussion about creating harmony between ourselves and the natural world.

Spycops Info
Episode 6: Kate Wilson & the IPT part 1

Spycops Info

Play Episode Listen Later May 17, 2021 65:37


Kate Wilson was one of the women deceived into to a relationship by undercover police officer Mark Kennedy. Like several others she brought a civil claim against the police about it, unlike anyone else she was able to finally get a day in court about it. You can read her personal story here: https://policespiesoutoflives.org.uk/our-stories/kates-story/ Learn about her case at the Investigative Powers Tribunal here: http://campaignopposingpolicesurveillance.com/2021/04/24/kate-wilson-case-exposing-institutional-sexism-spycops/ And follow her on twitter here: https://twitter.com/fruitbatmania This is just part one of what is likely to be a very long running series, look out for part two in the months ahead.