Podcasts about disease association

Conversamos con el divulgador científico Gonzalo (DatosDeCiencia) sobre la aplicación del método científico. Especialmente, en el ámbito de la salud y la nutrición. Te adelanto dos cosas: - Gonzalo es de las personas más inteligentes con las que he conversado en el podcast. - Ha cambiado el paradigma de lo que consideraba correcto a nivel nutricional. [...] Si te gusta el podcast, sospecho que te gustarán también mis EMAILS. Te podría decir que son maravillosos y cargados de valor, pero mejor que lo descubras por ti mismo. Si los quieres recibir, te puedes apuntar aquí: https://pildorasdelconocimiento.com/ Descubrirás ideas, reflexiones y... también estarás al tanto de cuando hago nuevas clases, masterclasses y formaciones. No te confundo con más enlaces. Está todo ahí. :::::::::::::::: ÍNDICE :::::::::::::::: 00:00:00 Intro 00:01:01 Gonzalo de DatosDeCiencia 00:04:50 Ciencia vs Show 00:06:20 Ciencia en nutrición 00:08:25 Alimentación evolutiva (falacia narrativa) 00:09:50 Tipos de razonamiento 00:14:20 Integración del razonamiento en el método científico 00:19:05 GPT Consensus 00:21:40 Dieta Vegana con el máximo respaldo científico 00:27:20 Tipos de experimentos 00:35:40 Falacias narrativas 00:42:10 La nutrición es un circo 00:47:50 Comer huevos 00:48:30 ¿Tenemos intuición nutricional? Adipostato y estímulos supernormales 00:52:20 Inteligencia fluida vs inteligencia cristalizada 00:54:20 Radical científico 00:59:20 Criterio del marcación en ciencia 01:05:05 Modelos probabilísticos 01:08:50 Libros y Papers 01:13:14 Despedida ::::::::::::::::REFERENCIAS::::::::::::::::: [Libro] «Comer para no morir» de Michael Greger (https://amzn.to/3UduOz8) [Paper] "The Environment and Disease: Association or Causation?" de Austin Bradford Hill (https://pmc.ncbi.nlm.nih.gov/articles/PMC1898525/) [Autor] Ronald Fisher – Padre del diseño experimental y la asignación aleatoria. - Obra destacada: "The Design of Experiments" (1935). (https://home.iitk.ac.in/~shalab/anova/DOE-RAF.pdf) [Autor] Thomas Kuhn – Autor que criticó la rigidez del método científico. - Obra destacada: "The Structure of Scientific Revolutions" (1962). (https://amzn.to/3U572Fp) [Autor] Paul Feyerabend – Filósofo de la ciencia que cuestionó la estructura rígida del método científico. - Obra destacada: "Against Method" (1975). (https://amzn.to/4h2K4IZ) [Referencia a Herramienta] GPT Consensus – Herramienta de inteligencia artificial que se basa en artículos científicos para generar respuestas en lenguaje natural. [Autor] Eric Rimm – Investigador mencionado en relación con las guías dietéticas y la nutrición, específicamente sobre productos animales. (https://scholar.google.com/citations?user=U7sQDw4AAAAJ&hl=en) [Autor] Philip Cole – Referenciado por su "Hypothesis Generating Machine", un artículo satírico que trata sobre la generación de hipótesis en ciencia. (https://www.jstor.org/stable/3702282) [Meta-análisis]: Título: "Dietary intake of total, animal, and plant proteins and risk of all cause, cardiovascular, and cancer mortality: systematic review and dose-response meta-analysis of prospective cohort studies". Conclusión: «Una mayor ingesta de proteínas totales se asoció con un menor riesgo de mortalidad por todas las causas, y la ingesta de proteínas vegetales se asoció con un menor riesgo de mortalidad por todas las causas y por enfermedades cardiovasculares. La sustitución de alimentos ricos en proteínas animales por fuentes de proteínas vegetales podría estar asociada con la longevidad.» (https://www.bmj.com/content/370/bmj.m2412) * Cita de Gonzalo en el minuto 01:11:01 "Todo trabajo científico es incompleto, ya sea observacional o experimental. Todo trabajo científico es susceptible de ser alterado o modificado por el avance del conocimiento. Eso no nos otorga la libertad de ignorar el conocimiento que ya tenemos, o de posponer la acción que parece exigir en un momento dado. Quién sabe, preguntó Robert Browning, pero ¿el mundo puede terminar esta noche? Es cierto, pero según las pruebas disponibles, la mayoría de nosotros nos preparamos para viajar al trabajo el día siguiente a las 8.30." — "The Environment and Disease: Association or Causation?" by Sir Austin Bradford Hill Puedes seguirme aquí: Website: https://pildorasdelconocimiento.com/ Twitter/X: https://twitter.com/Lualobus LinkedIn: https://www.linkedin.com/in/lualobus/ Instagram: https://www.instagram.com/fernando_pdc/ Youtube: https://www.youtube.com/c/P%C3%ADldorasdelConocimiento Puedes seguir aquí a Gonzalo: Instragram: https://www.instagram.com/datosdeciencia Youtube: https://www.youtube.com/@sciencedataoficial

Conversamos con el divulgador científico Gonzalo (DatosDeCiencia) sobre la aplicación del método científico. Especialmente, en el ámbito de la salud y la nutrición. Te adelanto dos cosas: - Gonzalo es de las personas más inteligentes con las que he conversado en el podcast. - Ha cambiado el paradigma de lo que consideraba correcto a nivel nutricional. [...] Si te gusta el podcast, sospecho que te gustarán también mis EMAILS. Te podría decir que son maravillosos y cargados de valor, pero mejor que lo descubras por ti mismo. Si los quieres recibir, te puedes apuntar aquí: https://pildorasdelconocimiento.com/ Descubrirás ideas, reflexiones y... también estarás al tanto de cuando hago nuevas clases, masterclasses y formaciones. No te confundo con más enlaces. Está todo ahí. :::::::::::::::: ÍNDICE :::::::::::::::: 00:00:00 Intro 00:01:01 Gonzalo de DatosDeCiencia 00:04:50 Ciencia vs Show 00:06:20 Ciencia en nutrición 00:08:25 Alimentación evolutiva (falacia narrativa) 00:09:50 Tipos de razonamiento 00:14:20 Integración del razonamiento en el método científico 00:19:05 GPT Consensus 00:21:40 Dieta Vegana con el máximo respaldo científico 00:27:20 Tipos de experimentos 00:35:40 Falacias narrativas 00:42:10 La nutrición es un circo 00:47:50 Comer huevos 00:48:30 ¿Tenemos intuición nutricional? Adipostato y estímulos supernormales 00:52:20 Inteligencia fluida vs inteligencia cristalizada 00:54:20 Radical científico 00:59:20 Criterio del marcación en ciencia 01:05:05 Modelos probabilísticos 01:08:50 Libros y Papers 01:13:14 Despedida ::::::::::::::::REFERENCIAS::::::::::::::::: [Libro] «Comer para no morir» de Michael Greger (https://amzn.to/3UduOz8) [Paper] "The Environment and Disease: Association or Causation?" de Austin Bradford Hill (https://pmc.ncbi.nlm.nih.gov/articles/PMC1898525/) [Autor] Ronald Fisher – Padre del diseño experimental y la asignación aleatoria. - Obra destacada: "The Design of Experiments" (1935). (https://home.iitk.ac.in/~shalab/anova/DOE-RAF.pdf) [Autor] Thomas Kuhn – Autor que criticó la rigidez del método científico. - Obra destacada: "The Structure of Scientific Revolutions" (1962). (https://amzn.to/3U572Fp) [Autor] Paul Feyerabend – Filósofo de la ciencia que cuestionó la estructura rígida del método científico. - Obra destacada: "Against Method" (1975). (https://amzn.to/4h2K4IZ) [Referencia a Herramienta] GPT Consensus – Herramienta de inteligencia artificial que se basa en artículos científicos para generar respuestas en lenguaje natural. [Autor] Eric Rimm – Investigador mencionado en relación con las guías dietéticas y la nutrición, específicamente sobre productos animales. (https://scholar.google.com/citations?user=U7sQDw4AAAAJ&hl=en) [Autor] Philip Cole – Referenciado por su "Hypothesis Generating Machine", un artículo satírico que trata sobre la generación de hipótesis en ciencia. (https://www.jstor.org/stable/3702282) [Meta-análisis]: Título: "Dietary intake of total, animal, and plant proteins and risk of all cause, cardiovascular, and cancer mortality: systematic review and dose-response meta-analysis of prospective cohort studies". Conclusión: «Una mayor ingesta de proteínas totales se asoció con un menor riesgo de mortalidad por todas las causas, y la ingesta de proteínas vegetales se asoció con un menor riesgo de mortalidad por todas las causas y por enfermedades cardiovasculares. La sustitución de alimentos ricos en proteínas animales por fuentes de proteínas vegetales podría estar asociada con la longevidad.» (https://www.bmj.com/content/370/bmj.m2412) * Cita de Gonzalo en el minuto 01:11:01 "Todo trabajo científico es incompleto, ya sea observacional o experimental. Todo trabajo científico es susceptible de ser alterado o modificado por el avance del conocimiento. Eso no nos otorga la libertad de ignorar el conocimiento que ya tenemos, o de posponer la acción que parece exigir en un momento dado. Quién sabe, preguntó Robert Browning, pero ¿el mundo puede terminar esta noche? Es cierto, pero según las pruebas disponibles, la mayoría de nosotros nos preparamos para viajar al trabajo el día siguiente a las 8.30." — "The Environment and Disease: Association or Causation?" by Sir Austin Bradford Hill Puedes seguirme aquí: Website: https://pildorasdelconocimiento.com/ Twitter/X: https://twitter.com/Lualobus LinkedIn: https://www.linkedin.com/in/lualobus/ Instagram: https://www.instagram.com/fernando_pdc/ Youtube: https://www.youtube.com/c/P%C3%ADldorasdelConocimiento Puedes seguir aquí a Gonzalo: Instragram: https://www.instagram.com/datosdeciencia Youtube: https://www.youtube.com/@sciencedataoficial

We spoke to Anne Stephenson, whose husband died from the disease and who is the current Chair of the Huntington's Disease Association (HDA) in Hampshire. She speaks about the illness, its symptoms and impact on families and talks more about social life, combatting loneliness and making happy memories. Mike Waddington, whose wife died from Huntington's in 2010, spoke to Anne about it, about Woody Guthrie and Hope. The HDA branch can be contacted at Huntington's Disease Association - South East (hda.org.uk) See omnystudio.com/listener for privacy information.

Dr. Duarte Machado is a neurologist specializing in Parkinson's Disease and has a personal connection with this condition.  He is a leader in helping care for those with Parkinson's.  In this episode, he takes away some of the mystery around this disease. Learn if what you're seeing, or experiencing, might be Parkison's and what that means.     Find out how you can make meaningful, tangible, durable improvements to your health at cprhealthclinic.com Schedule a free consultation.   (Below is a portion of the AI-generated transcript.  If you want the whole thing, check out cprhealthclinic.com)   Dr. Sagar: Thank you everyone for joining us on this new season of CPR for Life. This time we'll be delving into Parkinson's disease. Unfortunately, it's a growing scourge, but the good news is you do have some control. Joining me today, luckily, is the perfect person. To help us explore this topic, Dr. Duarte Machado is a board-certified neurologist with subspecialty training in movement disorders, aka Parkinson's and other things like that. He committed to a career caring for those with movement disorders while still just a high school student when his grandma was diagnosed with Parkinson's disease. He completed neurology residency and fellowship training at the Yale School of Medicine. He practiced at Yale for some time, but is now the Director of Program Excellence and Recognition at the Chase Family Movement Disorder Center in Hartford, Connecticut. He's also deeply involved with research, and education, and has extensive experience in deep brain stimulation. On top of all that, he also serves on the Board of Directors of the American Parkinson's Disease Association, Connecticut chapter, in addition to other leadership roles such For other societies, Dr. Machado, welcome to the program. And thank you for being here. Dr. Duarte: Oh, thank you so much for having me here. Dr. Sagar: Yeah. So that's an interesting story that you were just a high school student. That's a rare thing to know what you're going to do with your entire life. When you're still in high school, tell us more about what happened with your grandma and how that impacted you. Dr. Duarte: Yeah. So my parents are, they're both immigrants and they came to this country to really achieve the American dream of providing opportunities for their children. They both have a fourth grade education only. And they were came here with little skills and so, settled in a blue collar town and did factory work. And so I didn't have. Much knowledge about what opportunities there were beyond what my parents were doing. And they would only emphasize, please get as best an education you can so that you can do more than the type of work that we're doing. So when my grandmother then was diagnosed with Parkinson's, it was the first major illness that, that we had. Came to our family and she, , lived just a few houses down from where I lived and we were very close. And at the time I was a high school freshman and started, , went to a visit with her and was just odd at learning more about this condition that now afflicted her. And I said, this is what I want to do this, to learn more about this particular condition and learn how to help her and many others with this ailment. So, by the time I was a senior in high school, I said, I'm only applying to programs that have neuroscience majors. And then even. Went through 4 years at an undergrad and then went directly to medical school at UConn and knew right off the bat that I wanted to be a neurologist, even though exposed to many other fields and in the 3rd year. Still neurology was number one and movement disorders in particular. So I never missed a beat in my path to get to where I am now. Yeah, Dr. Sagar: were called to it and you're a man on a mission. Even still, we're just talking about how you just finished seeing some patients. As soon as we're done, you're still going to see some more patients. There was no, no rest. Dr. Duarte: right. Dr. Sagar: tell me more about what you saw in your grandma and use that to help us understand what the heck Parkinson's disease actually is. Dr. Duarte: Yeah, so Parkinson's the diseases whereby there is a loss over time of. Cells that make a neurochemical called dopamine and dopamine is the main neurochemical necessary for initiation of movement. So the main cardinal feature of Parkinson's is slowness of movement that people just take longer to initiate that motion. So there's slowness in their ability to. to move that in conjunction with other symptoms such as tremor or stiffness or what's called postural instability or change in posture. Those four motor features constitute the primary symptoms of Parkinson's. So not everyone has to have tremor. So there are subtypes of Parkinson's depending on the, what motor symptoms are present.  Certainly I saw this, that slowness of movement and some postural change with my grandmother that initially as is seen often, is attributed to aging. But certainly there, one can differentiate between what's normal aging and what's abnormal aging. And with her she also had some other symptoms that, pointed to this being abnormal, and for her to seek the care of a neurologist. Dr. Sagar: What do you mean by postural changes? How does a person look different?  

This is from my school's podcast club, for whom I am the erstwhile producer. One of the students interviewed me about my journey with H.D, my plan for fundraising, and my London Marathon training. If you want to donate: justgiving.com/rileyrun Support the show

Have you ever felt the weight of the world on your shoulders while caring for a loved one suffering from a debilitating disease? Dr. George Ackerman knows that feeling all too well. He opens his heart and shares his personal journey of caregiving for his late mother, Sharon, who battled both Parkinson's and dementia. His poignant narrative about the challenges he faced in ensuring proper medication and making the difficult decision to keep her at home is bound to resonate with many listeners.Dr. Ackerman's dedication to raising awareness about Parkinson's disease is evident in his tireless work with the Together for Sharon. He also emphasizes the importance of movement for those living with Parkinson's, a simple yet crucial aspect that greatly impacts their quality of life. His family's trials and tribulations with his mother's dual diagnosis, as well as the support they received from the American Parkinson's Disease Association, offer a realistic look at what life is like for caregivers and their loved ones.In the final segment of our conversation, George finds the strength to share uplifting stories and offer messages of hope and resilience. Through his platform, Together for Sharon, and his advocacy work, he continues to inspire and support those who are navigating their own seasons of caregiving. Tune in to hear how Dr. George Ackerman's experiences serve as a beacon of light for others amidst the challenging world of caregiving.

Don and Jordan from 'I Scene It' podcast join Sean to defend Airborne, a 1993 film about inline skating. Sean couldn't find anywhere to watch the film online. Basic Plot: Mitchell is a California kid and his rich, awesome parents tell him that a trip to Australia...but his parents send him to Cincinnati (in the middle of winter) to his Aunt and Uncle's. With best mate Seth Green, a jock brother, and a visually attractive female, Mitchell attempts to keep his head above water in his new environment. To help with his acclimatisation, he decides to take on Devil's Backbone on his rollerblades. Discussion Points: -Sean thinks Airborne is spelt another way. It isn't. -Don and Jordan lay out the basic plot of the film and when they first saw the film. -Sean brings it all back to an English example: Michael Crawford's rollerblading stunts in 'Some Mothers Do 'Ave Em' (1973-1975). -The lack of health and safety in the 1990s. -Sean is confused by the American obsession with yearbooks. -The most-1990s character in the history of film nominations are in! -Don, Jordan and Sean try to figure out if anyone wants a fourth Cornetto Trilogy film. Raised Questions: -Would you pay £40 for a single DVD? -Just visually attracted? -Where in Cincinnati is this massive rollerblading hill? -Were Don or Jordan rollerbladers? -Does the Review It Yourself audience know what a VHS is? -Why did this film fail to make a cultural impact? -Was this film above Matthew Broderick? -Is Jordan wearing pants? -Is it obvious that Sean is English? Random Recommendations: -Small Soldiers (1998). -Without a Paddle (2004). -Shaun of the Dead (2004). -Hot Fuzz (2007). Thanks for Listening! October 2023: As agreed with the fantastic Don and Jordan, £29.71 (money from Patreon subscriptions over the past few months) was been donated to the Huntington's Disease Association. This podcast is not affiliated nor endorsed by the Huntingdon's Disease Association. Trailer: FilmFloggers: www.filmfloggers.com Review It Yourself now has a Patreon! Find us here: Patreon: https://www.patreon.com/review_it_yourself21 Twitter: @YourselfReview Instagram: reviewityourselfpodcast2021

Rosa Pena, MSW and VP of Programs and Services at the American Parkinson Disease Association joins us on the Aging Today Podcast. While living with Parkinson's Disease, it's easy to start feeling alone and isolated. In Part 5 of our series on Parkinson's, Rosa shares how a Social Worker can come alongside you and become a significant resource and guide so you can live your best life possible. Click AgingToday.us to listen!

Dr. Rebecca Gilbert, Chief Scientific Officer of the American Parkinson Disease Association, joins us for Part 2 of our Parkinson's Disease series. Dr. Gilbert takes us on a deep dive into Parkinson's Disease from a clinical viewpoint. We address many questions, such as: What is Parkinson's Disease? What are some of the most common Parkinson's Disease symptoms? How does Parkinson's progress? We also discuss the latest treatments. Click AgingToday.us & listen today!

Leslie Chambers, President & CEO of the American Parkinson Disease Association kicks off our 5-part series on Parkinson's Disease. Leslie and her team of dedicated professionals work tirelessly every day to provide support, education, and research to help everyone impacted by Parkinson's disease. Through the nationwide network of Chapters, Information & Referral Centers, you will discover many in-person and virtual programs, including everything from exercise and movement classes, to support groups and educational webinars.Click AgingToday.us and listen today!

Guest: Wendy Toerien is The Secretary Motor Neuron Disease Association South Africa and she joins John to discuss the support network that you can turn to if you or a loved one is coping with the illness.See omnystudio.com/listener for privacy information.

Amber Smithson is the Director of Business Development at Bakersfield Behavioral Healthcare Hospital. She joined the hospital about six years ago and since then has had the great privilege of helping to educate and advocate for mental health and addiction in her community. She is passionate about bringing about awareness and doing her part to help reduce the stigma associated with mental health.  Troy Burden sits down with Amber Smithson, the Director of Business Development at Bakersfield Behavioral Healthcare, as she helps bring truth to the common myths that surround mental health issues. She explains the common issues that our youth face such as anxiety and depression that stems from school or social settings and how no matter the situation it should be taken seriously. She encourages anyone who is facing mental health issues to be open and honest with those around them and to seek help when it becomes too much for them to handle. LEARN MORE ABOUT BAKERSFIELD BEHAVIORAL HEALTHCARE: Website: www.bakersfieldbehavioral.com/ Phone: (661) 837-0755 Instagram: @bakersfieldbehavioral Facebook: Bakersfield_Behavioral_Healthcare_Hospital LinkedIn: BakersfieldBehavioralHealthcareHospital YouTube: @bakersfieldbehavioralhealt762 Bakersfield Behavioral Healthcare Hospital 661-398-1800 Kern County Crisis Line 800-991-5272 Crisis Text Line Text HOME to 741741 National Alliance on Mental Health 800-950-NAMI (6264) Suicide Prevention Lifeline 800-273-8255 or 988 CA Youth Crisis Hotline 800-843-5200 The Center (LGBTQ+) 661-843-7995 TrevorLifeline (LGBTQ+) 866-488-7386 Trevor Chat (LGBTQ+) Text START to 678678 Kern Helpline (CAP-K) 211 (Food Distribution Info) Kern County Family Justice Center 661-868-8410 Alliance Against Family Violence 800-273-7713 ORGANIZATIONS Kern County Aging & Adult Services 5357 Truxtun Avenue Bakersfield, CA 93309 Phone: (661) 868-1000 Alzheimer's Disease Association of Kern County ​4203 Buena Vista Road Bakersfield, CA 93311 Phone: (661) 665-8871 Stepping Stones Outpatient Services 5201 White Lane, Bakersfield, CA 93309 Phone: (661) 241-5537 Email us, for information only: abk.marketing@bakersfieldbehavioral.com Group Therapy in person or via Zoom Senior Helpers 3917 Stockdale Hwy Bakersfield, CA 93309 Phone: (661) 768-0688 ​in-Home Help Community Action Partnership of Kern (CAP-K) Call 211 for connections to hundreds of services in Kern County. Or visit: www.211kerncounty.org  

Today we are talking with Bill Patjan, Regional Director of the American Parkinson Disease Association! https://rielderinfo.com/

Suffering from inexplicable sores & excruciating pain since he was 5 years old, August searched to uncover what plagued so many years of his life and threatened his mobility.  His dreams of a musical theater career quickly faded away as his condition worsened, so August decided to challenge the constant silencing of his symptoms and fight the cause of the irreversible physical damage. *  *  *  *  *  * ****** SPOILER ALERT BELOW ****** If you're looking for more information on Behcet's, you can check out the American Behcet's Disease Association by heading to www.behcets.com. You can also find August Rocha on Instagram & TikTok @WithLoveAugust.See omnystudio.com/listener for privacy information.

Yvonne Nava is an anchor at KVUE in Austin, Texas. Yvonne starts her day bright and early with the Daybreak team. You can catch her behind the desk weekdays from 5 to 7 a.m. and on Midday at 11 a.m. Yvonne has reported and anchored across the country for more than a decade and is so happy to be back in her home state. In her years with KVUE, Yvonne has been recognized numerous times by the Texas Associated Press for her anchoring. Born and raised in Laredo, Yvonne jumped into the business at the age of 18 when she started reporting for Telemundo. While attending the University of Texas at Austin, she graduated with degrees in broadcast journalism and business. During her senior year she was recognized by Hispanic Magazine for being an outstanding role model for Latinas. After graduating from UT, Yvonne got her first anchoring job at KACB in San Angelo, Texas. Her next move took her to KCBD in Lubbock, Texas, where she anchored the weekend evening news, covering everything from deadly tornadoes to the Columbia space shuttle disaster. After less than two years, she was off to Tennessee at WATE in Knoxville, where she helped launch the station's weekend morning newscast. Yvonne's journey through journalism then took her to the beaches of sunny South Florida. In 2005, she joined WPLG in Miami as a breaking news reporter and anchor. She covered everything from Fidel Castro to Hurricane Katrina. After Miami she was off to Connecticut where she anchored their weekday morning newscast and her days consisted of wall-to-wall coverage of massive blizzards instead of tropical storms. In the Nutmeg State, Yvonne was also named one of Hartford's Top 40 Under 40 which is given to people in Connecticut who are positive role models in the community. Her career highlights include traveling to rural Mexico, where she discovered contaminated vegetables were the cause of a Hepatitis A outbreak in East Tennessee. She also reported on the capture of Eric Rudolph, the Olympic Park bomber, in North Carolina. Outside of work, Yvonne enjoys being active in the community. She has volunteered with the American Parkinson's Disease Association, the Susan G. Komen Breast Cancer Foundation and their Race for the Cure, the American Red Cross, the Lupus Foundation, the Salvation Army and Meals on Wheels. Yvonne enjoys mentoring young girls with GenAustin because she remembers how impressionable she was as that age. She believes it's important for young girls to know that they control their own destiny, which includes not only their career path, but their overall happiness as well. On the weekends, Yvonne loves to go exploring with all her boys -- her husband, Alex, and her sons. Together they like to go off the beaten path by going on road trips and visiting different museums and restaurants. And now that she is close to family, you can definitely add football tailgates and backyard barbecues to the list! Watch Yvonne every weekday morning and be sure to follow her on Instagram @yvonnefromkvue or on Twitter @YvonneN_KVUE 

Welcome to the Aphasia Access Aphasia Conversations Podcast. I'm Ellen Bernstein-Ellis, Program Specialist at the Aphasia Treatment Program at Cal State East Bay in the Department of Speech, Language and Hearing Sciences, and a member of the Aphasia Access Podcast Working Group. Aphasia Access strives to provide members with information, inspiration, and ideas that support their aphasia care through a variety of educational materials and resources. I'm today's hosts for an episode featuring Dr. Arla Good and Dr. Jessica Richardson.        We will discuss the SingWell Project and the role of aphasia choirs from a bio-psychosocial model. Today's shows features the following gap areas from the Aphasia Access State of Aphasia Report authored by Nina Simmons-Mackie:  Gap area #3: insufficient availability of communication intervention for people with aphasia, or the need for services.  Gap area #8: insufficient attention to depression and low mood across the continuum of care.  Gap area #5: insufficient attention to life participation across the continuum of care. Guest Bios: Dr. Arla Good is the Co-director and Chief Researcher of the SingWell Project, an initiative uniting over 20 choirs for communication challenges around the world. Dr. Good is a member of the Science of Music, Auditory Research and Technology or SMART lab at Toronto Metropolitan University, formerly Ryerson University. Much of her work over the last decade has sought to identify and optimize music based interventions that can contribute to psychological and social well-being in a variety of different populations.  Dr. Jessica Richardson is an associate professor and speech-language pathologist at the University of New Mexico in the Department of Speech and Hearing Sciences, and the Center for Brain Recovery and Repair. She is director of the UN M brain scouts lab and the stable and progressive aphasia center or space. Her research interest is recovering from acquired brain injury with a specific focus on aphasia, recovery, and management of primary progressive aphasia. She focuses on innovations in assessment and treatment with a focus on outcome measures that predict real world communication abilities, and life participation. Listener Take-aways In today's episode you will: Learn about the SingWell Project model of supporting choirs and research around the world Learn which five clinical populations are the initial targets of the SingWell Project Discover how the SingWell Project is challenging the stigma about disability and singing Learn about some of the biopsychosocial measures being used to capture choir outcomes Transcript edited for conciseness Show notes Ellen Bernstein-Ellis  02:58 I'm going to admit that aphasia choirs have long been one of my clinical passions. I'm really excited and honored to host this episode today. I'd like to just start with a question or two that will help our listeners get to know you both a little better. So Arla, is it okay, if I start with you? Would you share what motivated you to focus your research on music-based interventions? Do you have a personal connection to music?   Arla Good  03:29 I feel like I could do a whole podcast on how I ended up in this field.   Ellen Bernstein-Ellis  03:33 That'd be fun.   Arla Good  03:34 There's just so many anecdotes on how music can be a powerful tool. I've experienced it in my own life, and I've witnessed it in other lives. I'll share one example. My grandfather had aphasia and at my convocation when I was graduating in the Department of Psychology with a BA, despite not being able to communicate and express himself, he sang the Canadian National Anthem, perfect pitch-- all of the words. It's just an accumulation of anecdotes like that, that brought me to study music psychology. And over the course of my graduate studies, I came to see how it can be super beneficial for specific populations like aphasia.    So, I do have a quote from one of our choir participants that really sparked the whole idea of SingWell. It was a Parkinson's choir that we were working with. And she says, “At this point, I don't feel like my Parkinson's defines me as much as it used to. Now that I've been singing with the group for a while, I feel that I'm also a singer who is part of a vibrant community.” And that really just encapsulates what it is and why I'm excited to be doing what I'm doing--  to be bringing more positivity and the identity and strength into these different communities.   Ellen Bernstein-Ellis  04:49 Yes, the development of positive self-identity in the face of facing adversity is such an important contribution to what we do and thank you for sharing that personal journey. That was really beautiful.  Jessica, I'm hoping to get to hear a little bit about why what your personal connection is to aphasia choirs and music.   Jessica Richardson  05:12 Again, so many things. I grew up in a musical household. Everyone in my family sings and harmonizes and it's just beautiful. But a lot of my motivation for music and groups came from first just seeing groups. So some early experience with groups at the VA. Seeing Dr. Audrey Holland in action, of course, at the University of Arizona-that's where I did my training. Dr. Elman, you, of course, so many great examples that led to the development of lots of groups. We do virtual online groups for different treatments, different therapies. We have space exploration. We have space teams, which is communication partner instruction that's virtual. So we do lots of groups. And of course, we have a neuro choir here in New Mexico. Now, I'm just so excited that there's so much research that's coming out to support it.    Ellen Bernstein-Ellis  06:03 Jessica, can I just give you a little shout out? Because you were visionary. You actually created these amazing YouTube videos of your choir singing virtually, even before COVID. And you came out with the first virtual aphasia choir. I remember just sitting there and just watching it and being amazed. And little did we know. I guess you knew! Do you want to just take a moment because I want to put those links in our show notes and encourage every listener to watch these beautiful virtual choir songs that you've done. You've done two right?   Jessica Richardson  06:44 Yes. And I could not have done it, I need to make sure I give a shout out to my choir director, Nicole Larson, who's now Nicole Larson Vegas. She was an amazing person to work with on those things. She also now has opened a branch neuro choir, just one town over. We're in Albuquerque and she's in Corrales and our members can go to either one. We coordinate our songs.    I'd really like to start coordinating worldwide, Ellen. We can share resources and do virtual choirs worldwide and with Aphasia Choirs Go Global. But I definitely want to give her a shout out. And then of course our members. I mean, they were really brave to do that. Because there was nothing I could point them to online already to say, “Hey, people are doing this. You do it.” So they were really courageous to be some of the first.   Ellen Bernstein-Ellis  07:36 Do you want to mention the two songs so people know what to look for? And just throw in the name of your choir.   Jessica Richardson  07:42 We're just the UNM neuro choir as part of the UNM Brain Scouts. The first song was The Rose. The second song was This is Me from the Greatest Showman. And the song journal that you could wait for in the future is going to be Don't Give Up On Me by Andy Grammer.    Ellen Bernstein-Ellis  08:01 Beautiful! I can hardly wait. And there are some endeavors and efforts being made to create these international groups. Thank you for doing a shout out to Aphasia Choirs Go Global, which is a Facebook group to support people who are involved in neuro and aphasia choirs. I'll give a shout out to Bron Jones who helped start it and Alli Talmage from New Zealand who has worked really hard to build a community there. It's been really wonderful to have a place where we can throw out questions to each other and ask for opinions and actually dig into some interesting questions like, “What measures are you using to capture X, Y, or Z?” I think we'll get to talk about some of that today, actually. So thank you.    I encourage our listeners to listen to those two YouTube videos we'll put in the show notes. But Jessica, I'm going to give you a twofer here. I've been following your amazing work for many years, but the first time I got to meet you in person was at an Aphasia Access Leadership Summit. I wanted to ask you as an Aphasia Access member, if you have any particular Aphasia Access memories that you could share with our listeners?   Jessica Richardson  09:09 Well, it was actually that memory. So, I would say my all-time favorite collection of Aphasia Access moments, really was working with my amazing colleague, Dr. Katerina Haley. She's at UNC Chapel Hil. We were co-program chairs for the Aphasia Access 2017 summit in Florida. The whole summit, I still think back on it and just smile so wide. And you know, we went to the museum, we were at the Aphasia House, just so many wonderful things. All of the round tables and the presentations, they just rocked my world. And it's just something I'm super proud to have been a part of behind the scenes making it happen. And I also remember that you wrote me the nicest note afterwards.    Ellen Bernstein-Ellis  09:54 It was just because it impacted me, too. Personally, I felt like it just cracked open such a world of being able to have engaging discussions with colleagues. Tom Sather, really named it the other day (at IARC) when he quoted Emile Durkheim's work on collective effervescence, the sense of being together with a community. I'm seeing Arla, nodding her head too.   Arla Good Yeah, I like that.   Ellen Bernstein-Ellis   Yeah, there was a lot of effervescing at these Leadership Summits, and we have one coming up in 2023. I'm really excited about it and hope to get more information out to our listeners about that. So I'll just say stay tuned. And you'll be hearing more, definitely.   I just want to do one more shout out. And that is, you mentioned international collaboration. I'd like to do a quick shout out to Dr. Gillian Velmer who has been doing the International Aphasia Choirs. I'll gather a couple of links to a couple of songs that she's helped produce with people around the world with aphasia singing together. So there's just some great efforts being done.    That's why I'm excited about launching into these questions. I want to start with an introduction of SingWell. Arla, would you like to get the ball rolling on that one?   Arla Good  11:09 For sure. SingWell began with my co-director, Frank Russo, and myself being inspired by that quote I shared at the beginning about singing doing something really special for these communities. We applied for a Government of Canada grant and we received what's called a Partnership grant. It really expanded well beyond just me and Frank, and it became a network of over 50 researchers, practitioners, national provincial support organizations, and it continues growing.    It's really about creating a flow of information from academia to the community, and then back to academia. So understanding what research questions are coming up in these communities of interests. And what information can we, as researchers, share with these communities? That's SingWell, I'll get into the research questions.   Ellen Bernstein-Ellis  12:03 Let's dive in a little bit deeper. What is SingWell's primary aim?  That's something you describe really well in an article we'll talk about a little later.   Arla Good  12:15 So our aim is to document, to understand, group singing as a strategy, as a way to address the psychosocial well-being and communication for people who are living with communication challenges. SingWell, we're defining a communication challenge as a condition that affects an individual's ability to produce, perceive or understand speech. We're working with populations like aphasia, but also people living with hearing loss, lung disease, stuttering. I hope, I don't forget anybody. There are five populations. Parkinson's, of course.   Ellen Bernstein-Ellis  12:53 Perfect. So that's your primary aim. Do you want to speak to any secondary or additional goals for your project?   Arla Good  13:03 The second major pillar of this grant is to advocate and share the information with these communities. So, how can we facilitate the transfer of this knowledge? We've started a TikTok channel, so you can watch videos. We have a newsletter and a website that's continuously being updated with all the new information. We want to develop best practice guides to share with these communities about what we've learned and how these types of choirs can be run. And really, just mobilize the network of partners so that we're ensuring the information is getting to the right community.   Ellen Bernstein-Ellis  13:35 Wow. Well, I mentioned a moment ago that there's a 2020 article that you wrote with your colleagues, Kreutz, Choma, Fiocco, and Russo that describes the SingWell project protocol. It  lays out your long term goals. Do you want to add anything else to what you've said about where this project is headed?   Arla Good  13:54 Sure, the big picture of this project is that we have a network of choirs that are able to address the needs of these different populations. I want the network to be dense and thriving. The home of the grant is Canada. But of course, we have partners in the states, like Jessica, and in Europe and in New Zealand. So to have this global network of choirs that people can have access to, and to advocate for a social prescription model in healthcare. Have doctors prescribing these choirs, and this network is available for doctors to see, okay, here's the closest choir to you. So, in some ways, this is a third goal of the project is to be building this case for the social prescription of singing.    Ellen Bernstein-Ellis  14:41 Before we go too much further, I want to acknowledge that you picked a wonderful aphasia lead, Dr. Jessica Richardson. That's your role, right? We haven't given you a chance to explain your role with SingWell. Do you want to say anything about that Jessica?   Jessica Richardson  14:58 Yeah, sure. I'm still learning about my role. Overall, I know theme leaders, in general, were charged with overseeing research directions for their theme. Aphasias, the theme that I'm leader of, and then monitoring progress of research projects and the direction of that. So far, it's mostly involved some advising of team members and reviewing and giving feedback of grant applications. I'm supposed to be doing more on the social and networking end and I hope to be able to make more that more of a priority next year, but I do think this podcast counts. So thank you for that.    Ellen Bernstein-Ellis  15:33 Well, you did a wonderful presentation. I should be transparent, I was invited to be on the Advisory Committee of SingWell, and I got to hear your first presentation at the first project meeting where each team leader explained their focus and endeavor. I was so excited to hear the way you presented the information on aphasia, because again, we know that for some people, aphasia is not a well-known name or word. And even though this is a very educated group, and I think everybody, all the leaders know about aphasia, but it was nice to see you present and put on the table some of the challenges and importance of doing this research.    One of the things that really attracted me when reading about that 2020 article is that you talk about SingWell having an ability versus disability focus early, Arla, could you elaborate on that?   Arla Good  16:22 Our groups are open to anybody, regardless of their musical, vocal or hearing abilities. And we compare it often to the typical talk-based support groups that focuses on challenges and deficits. Of course, there's a time and place, these can provide a lot of benefit for people living in these communities. So, this isn't a replacement for these types of support groups,  But, singing is a strength-based activity. They're working together to create a beautiful sound and there's often a performance at the end that they're very proud of. We're challenging stigma, especially in a population like aphasia, where it would seem like, oh, you have aphasia, you can't sing? But, of course they can. We're challenging that stigma of who can sing and who can't sing. We find that it's just so enjoyable for these people to be coming and doing something strength- based and feeling good. Going back to that, quote I said at the beginning, right? To feel like there's more to their identity than a diagnosis. This is what keeps them coming back.    Ellen Bernstein-Ellis  17:22 Beautifully said, and I can't help but think how that really connects with the life participation approach. There's no one better than Jessica, for me to throw that back out to her, and ask how she sees the connection between that.   Jessica Richardson  17:37 Yes, absolutely. Their focus on ability and fighting loneliness and isolation and on social well-being is right in line with it. Because LPAA is really focusing on reengagement in life, on competence, rather than deficits, on inclusion, and also on raising the status of well-being measures to be just as important as other communication outcomes.    I want to make sure we also bring up something from our Australian and New Zealand colleagues, the living successfully with aphasia framework, because it is also in line with LPAA and SingWell. I can say they have this alternative framework. They also don't want to talk about the deficit or disability. It doesn't try to ignore or even minimize the aphasia, but it emphasizes positive factors, like independence, meaningful relationships, meaningful contributions, like you know that performance. So there's just so much value and so much alignment with what Aphasia Access listeners and members really care about.    Ellen Bernstein-Ellis  18:44 That's a great transition for what I was thinking about next. I was very excited to see people talking about the 2018 review by Baker, Worrall, Rose and colleagues that identifies aphasia choirs as a level one treatment in the step psychological care model for managing depression in aphasia. So that's really powerful to me, and we're starting to see more research come out looking at the impact of participating in aphasia choirs. I'm really excited to see some of this initial research coming out.    Maybe you can address what some of the gaps in the literature might be when it comes to group singing? And its impact on well-being. Maybe Arla, we can start with that and then Jessica, you can jump in and address specifically communication and aphasia choirs. Arla, do you want to start out?   Arla Good  19:35 This is a very exciting time, like you said, there is research that is starting to come out. People are starting to study choirs as a way of achieving social well-being, psychological well-being and so the field is ripe and ready for some good robust scientific research.    Most of the studies that are coming out have really small sample sizes. It's hard to get groups together, and they often lack comparison groups. So what I think SingWell is going to do is help understand the mechanisms and what is so great about singing and what singing contributes. The other thing I'd like to mention is that with SingWell, our approach is a bit unique compared to what some of the other research researchers are doing, in that we're adopting a very hands-off approach to choir. So we're letting choir directors have the autonomy to organize based on their own philosophies, their expertise, and the context of their choirs. So we call it choir in its natural habitat.   And this is giving us the opportunity to explore group effects. What approach is the choir director taking and what's working, what's not working? And to have this large sample of different types of choirs, we can learn a lot from this number, this type of research project as well.   Ellen Bernstein-Ellis  20:54 What I really love about that is getting to know some of these wonderful colleagues through Aphasia Choirs Go Global and hearing about what their rehearsals and goals look like. There are some amazing similarities, just like saying, “You're doing that in Hungary? But we're doing that here, too.”  And there are some wonderful differences. I really firmly believe that there are a variety of ways to do this very successfully, just like there are a variety of ways to run successful aphasia groups, but there's going to be some core ingredients that we need to understand better.    Just before I go too far away from this, how about you? Do you want to speak to anything we need to learn in the literature about aphasia choirs?   Jessica Richardson  21:35 Yeah, I mean, I don't think I'm saying too much different than Arla. Arla, may want to follow up. But the main gap is that we just don't have enough evidence. And we don't have enough, like she said, solid methodology, high fidelity, to even support its efficacy to convince stakeholders, third party payers, etc. Anecdotal evidence is great, and YouTube videos that we create are also great, but it's not enough. And even more and more choirs popping up around the world, it's not enough.   We need that strong research base to convince the people that need convincing. SingWell is hoping to add to that through its pilot grants, through its methodology that they share for people to use. And I'm hopeful that other organizations, you know, like Aphasia Choirs Go Global, can link up at some point with saying, “Well, I'm excited about communities like that that are also supportive of researching choirs.” Arla, think I saw you're wanting to follow up.   Arla Good  22:31 I just wanted to add to something that Ellen had said about the power and diversity and having these different perspectives. And another goal of SingWell is to create, and it's up on the website already, it's a work in progress, it's going to continue growing, but a menu of options for choir directors who are looking to start a choir like this. Like if you want this kind of goal, here are some tips. So, if it's a social choir, you might want to configure the room in a circle. But if you have musical goals, maybe you want to separate your sopranos, your altos, tenors, and your bass. It's not one prescribed method. It's a menu of items that we're hoping we can through, this diversity of our network, that we can clarify for people who are trying to start a choir for themselves.   Ellen Bernstein-Ellis  23:19 I love that because I can hear in my head right now, Aura Kagan saying over and over again that the life participation approach is not a prescriptive approach. But rather, you're always looking at what is the best fit for your needs. Jessica, your head is nodding, so do you want to add anything?   Jessica Richardson  23:37 It's a way to shift your whole entire perspective and your framework. And that's what I love about it.   Ellen Bernstein-Ellis  23:44 We'll just go back to that 2020 article for a moment because I really liked that article. You and your authors describe four measures of well-being and there are potential neuroendocrinological, that's really a lot of syllables in here, but I'll try to say it again, neuroendocrinological underpinnings,    Arla Good   The hormones---   Ellen Bernstein-Ellis   Oh, that's better, thank you, the hormones, too. Could you just take a moment and please share what these four measures of well-being and their hormonal underpinnings might be?   Arla Good  24:11 For sure. The first one is connection, the connectedness outcome. So we're asking self-report measures of how connected people feel. But we're also measuring oxytocin, which is a hormone that's typically associated with social bonding.    The second measure is stress. And again, we're asking self-report measures, but we're also looking at cortisol, which is a hormone associated with stress.    The third measure is pain. And this one's a little bit more complex, because we're measuring pain thresholds. Really, it sounds scary, but what we do is apply pressure to the finger and people tell us when it feels uncomfortable. So it's actually well before anyone's experiencing pain. But we're thinking that this might be a proxy for beta endorphin release. So that's the underpinning there.    And then the last outcome is mood. This is also a self-report measure. And one of the types of analyses that we're running is we want to see what's contributing to an improved mood. Is it about the cortisol? Is it about just like deep breathing and feeling relaxed? Is it that or is there something special happening when they feel the rush of oxytocin and social connectedness? The jury's still out. These are super preliminary data at this point, especially with oxytocin, there's so much to learn. But those are some of the hormones, the sociobiological underpinnings that we're exploring.   Ellen Bernstein-Ellis  25:31 That makes for some really exciting research and the way you frame things, SingWell is supporting grants, maybe you could comment on how its biopsychosocial framework influences the methods and outcome measures that you want to adopt.   Arla Good  25:48 Sure, we do provide guidelines and suggestions for measures. Jessica alluded to this. We have it all up on the website, if anyone else wants to run a study like this. And then we have some that we're requiring of any study that's going to be funded through SingWell. And this is so we can address this small sample size problem in the literature. So the grant runs for six more years. It's a seven year grant. And at the end, we're going to merge all the data together for one mega study. We want to have some consistency across the studies, so we do have some that are required. And then we have this typical SingWell design. We're offering support for our research team, from what a project could look like.   Ellen Bernstein-Ellis  26:28 Well, this podcast typically has a wonderful diverse demographic, but it includes researchers. and clinical researchers who collaborate. So, let's take a moment and have you describe the grant review process and the dates for the next cycle, just in case people want to learn more.   Arla Good  26:45 Sure, so we are accepting grants from SingWell members. So the first step is to become a SingWell member. There is an application process on the website. We have an executive committee that reviews the applications twice a year, the next one is in scheduled for November. There's some time to get the application together. Once you're in as a member, the application for receiving funding is actually quite simple. It's basically just an explanation of the project and then it will undergo a review process. Jessica is actually one of our reviewers, so she can speak to what it was like to be a reviewer,   Ellen Bernstein-Ellis  27:21 That would be great because, Jessica, when you and I chatted about it briefly, I've never heard a reviewer be so excited about being supportive in this process. So please share a little bit more because I thought your perspective was so refreshing and positive.    Jessica Richardson  27:36 I have to say too, I have definitely benefited from having some amazing reviewers in my own lifetime. I definitely have to point out one who was so impactful, Mary Boyle, her review, it was so thorough, and it was so intense, but it elevated one of my first endeavors into discourse analysis to just like a different level. And just the way that she treated it as a way to help shape, she was so invested, in just making sure that we were the best product out there. I learned what the world needed to learn. I definitely learned a lot from that experience and from other reviewers like her that I've benefited from.    As a reviewer, whenever I review anything, I try to keep that same spirit. So when I was doing SingWell reviews, I made sure that I revisited the parent grant. I did a really good, thorough reread. I provided feedback and critiques from the lens of how does this fit with SingWell's aims? And, how can it be shaped to serve those aims if it isn't quite there yet? So it's never like, “Ah, no, this is so far off”, it was just like, “Oh, where can we make a connection to help it fit?” Then trying to provide a review that would be a recipe for success, if not for this submission cycle, then for the next.    And as a submitter, even though I mean, we didn't have a meeting to like all take this approach. But I felt that the feedback that I received was really in that same spirit. And so I love feedback in general. I don't always love the rejection that comes with it. But I do love stepping outside of myself and learning from that different perspective. And I've really just felt that this thing while reviewers were invested, and were really just interested in shaping submissions to success,   Ellen Bernstein-Ellis  29:24 That's really worthwhile, right? So you get something, even if you're not going to get funding. You still get to come away with something that's valuable, which is that feedback.    We've been talking about measures and I'm really interested in that as a topic. Jessica, could you take a moment and share a little bit about how SingWell's pre/post measures are being adopted for aphasia?  We all know that's some of the challenges. Sometimes, some of the measures that we use for mood, connectivity, or stress are not always aphasia-friendly. So what does that process look like?   Jessica Richardson  29:59 I will say they did their homework at the top end, even before the proposal was submitted. Really having you on the advisory board, and I was able to give some feedback on some of the measures. Some of the measures they've already selected were specific to aphasia. For Parkinson's disease, there are Parkinson's disease specific measures and for stuttering, specific measures. And for aphasia, they picked ones that are already aphasia-friendly. What I was super excited about too, is that they included discourse without me asking. It was already there. I think we helped build it to be a better discourse sample and we've added our own. So it's already in there as their set of required and preferred measures. But the other thing is that the investigator, or investigators, have a lot of latitude, according to your knowledge of the clinical population that you're working with, to add outcomes that you feel are relevant. That's a pretty exciting aspect of getting these pilot funds.    Ellen Bernstein-Ellis  30:58 So there's both some core suggested measures, but there's a lot of latitude for making sure that you're picking measures that will capture and are appropriate to your particular focus of your projects. That's great. Absolutely.   Jessica Richardson  31:09 I definitely feel that if there were any big issue that we needed to bring up, we would just talk to Arla and Frank, and they would be receptive.   Ellen Bernstein-Ellis  31:20 I've been very intrigued and interested in attempts to measure social connectedness as an outcome measure. You speak about it in your article, about the value of social bonding and the way music seems to be a really good mechanism to efficiently create social bonding. Is there something about choir that makes this factor, this social connectedness, different from being part of other groups? How are you going to even capture this this factor? Who wants to take that one?     Arla Good  31:50 I do, I can talk, we can do another podcast on this one.   Jessica Richardson  31:55 It's my turn, Arla. I'm just kidding (laughter).   Ellen Bernstein-Ellis  32:01 You can both have a turn. You go first, Arla,  And then Jessica, I think you will probably add,   Jessica Richardson  32:04 I'm totally kidding (laughter).   Ellen Bernstein-Ellis  32:06 Go ahead, Arla.   Arla Good  32:07 This is what I did my dissertation on. I truly believe in the power of group music making. So singing is just an easy, accessible, scalable way to get people to move together. It's consistent with an evolutionary account that song and dance was used by small groups to promote social bonding and group resiliency. I've seen the term collective effervescence in these types of writings.    When we moved together, it was like a replacement for in our great ape ancestors, they were one on one grooming, picking up the nits in each other's fur. Human groups became too large and too complex to do one on one ways of social bonding. And so we needed to develop a way to bond larger groups rapidly.    And the idea here is that movement synchrony, so moving together in precise time, was one way of connecting individuals, creating a group bond. Singing is just a fun way of doing that. I've been studying this for about 15 years and trying to understand. We've pared it down, right down to just tapping along with a metronome, and seeing these types of cooperation outcomes and feelings of social bonding, connectedness. I do think there's something special, maybe not singing specifically, but activities that involve movement synchrony. We could talk about drumming, we could talk about dance, I think that there is a special ingredient in these types of activities that promote social bonds.   Jessica Richardson  33:37 There's been some of us even looking at chanting, there's research about that as well.    Arla Good   We should do a SingWell study on chanting!   Ellen Bernstein-Ellis  33:43 Jessica, what else do you want to add about what is important about capturing social connectedness? Or, how do we capture social connectedness?     Jessica Richardson  33:53 I think I'll answer the first part, which is, what is special about thinking about it and capturing it. It's something that we've slowly lost over decades and generations, the communal supports. Our communities are weakened, we're more spread out. It's also a way of bringing something back that has been so essential for so long. We've weakened it with technology, with just all the progress that we've made. It's a way to bring something that is very primitive and very essential back. So, that doesn't totally answer your question, though.   Ellen Bernstein-Ellis  34:31 When we think about the isolation related to aphasia and the loss of friendship, and some of the wonderful research that's coming out about the value and impact of friendship on aphasia, and then, you think about choirs and some of this research--I believe choir is identified as the number one most popular adult hobby/activity. I think more people are involved in choirs as an adult. It's not the only meaningful activity, but it's a very long standing, well developed one,   Jessica Richardson  35:03 We have to figure out how to get the people though who will not touch a choir with a 10 foot pole?   Ellen Bernstein-Ellis  35:08 Well, we will continue to do the work on the other groups, right, that suits them very well. You know, be it a book club, or a gardening group, or a pottery class, or many, many, many other choices.   Jessica Richardson  35:21 Or a bell choir?   Ellen Bernstein-Ellis  35:24 Bell choirs are great, too.    Do either of you want to speak to what type of measures captures social connectedness or what you're using, or suggesting people try to use, for SingWell projects?   Jessica Richardson  35:38 I think Arla already captured some of those with those markers that she was talking about earlier. Hormonal markers. But the self-report questionnaires, and that perspective. There's other biomarkers that can very easily be obtained, just from your spirit. So I think that's going in the right direction, for sure.   Arla Good  35:59 Yeah, we've also looked at behavioral measures in the past like strategic decision making games, economic decision making games, and just seeing if people trust each other, and whether they're willing to share with each other. We've asked people how attractive they think the other people are. Questions like this that are capturing the formation of a group, whether they're willing to share with their in-group.  It's a question of in-group and out-group, and what are some of the effects of the in-group.     Jessica Richardson  36:26 And we're definitely exploring too, because we do a lot of neurophysiological recording in my lab. Is there a place for EEG here? Is there a place for fNIRS, especially with fNIRS, because they can actually be doing these things. They can be participating in choir, we can be measuring things in real time. While they're doing that, with the fNIRS-like sports packs, so sorry, fNIRS is functional near-infrared spectroscopy in case some of the listeners aren't sure.   Ellen Bernstein-Ellis  36:52 I needed help with that one too. Thank you.    I'm thinking about some of the work done by Tom Sather that talks about the sense of flow and its contribution to eudaimonic well-being, right? I think that's a key piece of what SingWell is looking at as well. It's exciting to look at all these different measures, and all these different pillars that you are presenting today.    And if people want to find out more about SingWell, do you want to say something about your website, what they might find if they were to go there?   Arla Good  37:25 Yes, go to the website, SingWell.org, pretty easy to remember. And on the website, you'll find all the resources to run a research study, to apply to be a member. We have resources for choir directors who are looking to start their own choir, we have opportunities to get involved as research participants if you're someone living with aphasia, or other communication challenges. There's lots of opportunities to get involved on the website. And you can sign up for our newsletter and receive the updates as they come and check out our website.   Ellen Bernstein-Ellis  37:57 That's great. I certainly have been watching it develop. And I think it has a lot of really helpful resources. I appreciate the work that's been put into that. How do people get involved in the SingWell project? You mentioned earlier about becoming a member. Is there anything else you want to add about becoming engaged with SingWell?    Arla Good  38:18 I think the ways to become involved, either becoming a member or starting a choir using the resources, or like I said, signing up for the newsletter just to stay engaged. And as a participant, of course, doing the surveys or signing up for a choir if you're one of the participants called.   Ellen Bernstein-Ellis  38:35 Thank you. I'm was wondering if you'd share with the listeners any sample projects that are underway.    Arla Good  38:46 For sure. So we have five funded studies this year. We have one ChantWell, which Jessica spoke about, assessing the benefits of chanting for breathing disorders. That's taking place in Australia. The effects of online group singing program for older adults with breathing disorders on their lung health, functional capacity, cognition, quality of life, communication skills and social inclusion. That is in Quebec, Canada. The third study, the group singing to support well-being and communication members of Treble Tremors. That's a Parkinson's choir taking place in Prince Edward Island, Canada. The fourth is how important is the group in group singing, so more of a theoretical question looking at group singing versus individual singing, an unbiased investigation of group singing benefits for well-being and that's also in Quebec. And then last but not least, I saved it for last, is our very own Jessica Richardson's group singing to improve communication and well-being for persons with aphasia or Parkinson's disease. So I thought I might let Jessica share, if she's open to sharing some of what the research study will entail.   Jessica Richardson  39:53 Oh, yes, thank you. When we first started our neuro choir, I had envisioned it as being an aphasia choir. And we had so much need in the community, from people with other types of brain injury. Our Parkinson's Disease Association, too, has really been reaching out ever since I've moved here. They have a group actually, they're called the Movers and Shakers, which I really love. So, we have a pretty healthy aphasia cohort of people who are interested, who also, you know, taking a break and only doing things virtually if they are interested, you know, since COVID. And then we have our Parkinson's cohort here as well, the Movers and Shakers, were following the suggested study design, it's a 12 week group singing intervention. They have suggestions for different outcome measures at different timescales, we're following that and adding our own outcome measures that we also feel are relevant. So we have those measures for communication and well-being, including the well-being biomarkers through the saliva. As she mentioned, already, we have latitude for the choir director, like who we want to pick and what she or he wants to do. We already have that person picked out. And we already know, and have all of that stuff figured out. There is some guidance, but again, flexibility for our session programming. And we have the choices over the homework programming, as well. We are really looking at this choir in the wild, and looking at those outcomes with their measures. So we're excited about it.   Ellen Bernstein-Ellis  41:22 I think you've just thought of a great name for a future aphasia choir, which is a “neuro choir choir in the wild”   Jessica Richardson  41:30 Well, out here, we're a choir in the wild, wild west.   Ellen Bernstein-Ellis  41:34 There you go. Absolutely. What have been some of the most surprising findings of the benefits of singing so far that have come in through the SingWell project? Either of you want to take that on?   Arla Good  41:46 I don't know if it's the most surprising, but it's definitely the most exciting. I'm excited to continue unpacking what's happening with oxytocin, I think it's a pretty exciting hormone, it's pretty hot right now. It's typically associated with being like a love hormone. They call it associated with sex, and it's associated with mother-infant bonding. If we can find a way that's not mother-infant or pair bonding to release oxytocin, that's very exciting. If group singing is one of those ways to promote this sense of “I don't know where I end and you begin, and we're one” and all those loving feelings. As Jessica mentioned, the missing piece, and how we relate to each other in a society, choir might be an answer to that. I'm really excited about the oxytocin outcome measure. Again, it's still very early, I don't want to say definitively what's happening, but it's a pretty exciting piece.   Jessica Richardson  42:45 I have a future doctoral student that's going to be working on this. That is the part she's most interested in as well..   Ellen Bernstein-Ellis  42:52 So there are some really good things that, hopefully, will continue to tell us what some of these benefits are and that it's important to fund and connect people to these types of activities. You said, this is like year one or two of a 6 year project, was that right? Or is it seven year?   Arla Good  43:09 It's seven year.   Ellen Bernstein-Ellis  43:10 So what is your hope for the future of the SingWell project?   Arla Good  43:15 The secondary goals would be the hope for the future, of actually creating change in the communities and getting people to think outside the box of providing care. Is there a choir that can be prescribed nearby? Is there a way to train these choir directors so that they have the correct training for this specific population? So drawing from the knowledge from speech- language therapy, from choir direction, from music therapy-   Ellen Bernstein-Ellis  43:42 Music therapy, right.   Arla Good  43:43 Of course, of course. So creating an accreditation program and training choir directors to lead choirs like this, and having this army of choir directors around the world that are doing this. So, this is a big goal. But that's what I hope to see.   Ellen Bernstein-Ellis  44:00 That's fantastic. And I think there's some researchers who are really working hard at looking at protocols and asking these questions. And I know, I've been inspired by some of the work that Ali Talmage is doing in New Zealand that's looking at some of these questions. And, Jessica, do you want to add what's your hope is as aphasia lead? Or, what you're thinking about for the SingWell project that you're excited about?   Jessica Richardson  44:21 We have to generate that evidence that we need and mentioning again, those 10 foot pole people, to reach out to let people know that choirs aren't just for people who think that they can sing. We definitely have had some very energetic and enthusiastic choir members who think that they can sing and cannot, and they're still showing up. Maybe you're the one who thinks that choirs aren't for you. If we can generate enough energy, inertia, and evidence to convince those that it might be worth giving a try. I think some of them are going to be surprised that they enjoy it and “oh, I can sing.” So I think that to me is a future hoped for outcome.    And then again, seeing it spread out to other gardening groups, other yoga groups, all these other things that we know are happening within Aphasia Access members and beyond to see, okay, there's this methodology. This is what's used to study something like this, let's apply it also so that its efficacy data for these other approaches that we know and we see can be helpful, but we don't have enough proof to have someone prescribe it and to get those stakeholders involved.   Ellen Bernstein-Ellis  45:33 Yes. And we talked about the importance of some of the work that's being done with mental health and aphasia and how some of the information that you're pursuing could really tie in and help us support and get more work in that area as well. So really exciting.    I can't believe we have to wrap up already. I agree with you all, that we could just keep talking on this one. But let's just end on this note, I would like to find out from both of you. If you had to pick just one thing that we need to achieve urgently as a community of providers and professionals, what would that one thing be? What would you like to speak to? At the end of this discussion we've had today and Arla, you get to go first again.   Arla Good  46:15 The one thing we need to achieve urgently is to find a way to address people's needs in a more holistic way. And to see the human as a whole, that it's not just this piece and this piece and this piece, but all of it together? And how can we do that? How can we communicate better as practitioners, as researchers, so that we can address these needs more holistically?   Ellen Bernstein-Ellis  46:36 Thank you. Thank you. And Jessica, what would you like to say?   Jessica Richardson  46:41 I could just say ditto. I totally agree. So the end.    But I think the other part is from a clinician standpoint. What I hear most from colleagues that are out there in the wild, and former students, is that they want the “How to” info which is perfect, because, SingWell has a knowledge mobilization aim, and the exact aim of that is to develop and share best practice guides, which you know, are already mentioned, choir sustainability guides, how to fund it, how to keep it going. Really important. And they're going to update these regularly. It's going to be available in lots of languages. So that's something I'm especially excited for, for our community, because I know so many people who want to start a choir, but it feels too big and intimidating, and maybe they don't feel like they have the musical chops. But this will really help them get over that hump to get started and will address that need. And that desire, that's already there, in a big way.        Ellen Bernstein-Ellis  47:42 Thank you. I'm so appreciative that you both made this happen today. It was complicated schedules. And I just really, really appreciate want to thank you for being our guests for this podcast. It was so much fun. I'm excited to follow the SingWell project over the next seven years and see what continues to grow and develop.    So for more information on Aphasia Access, and to access our growing library of materials, please go to www.aphasiaaccess.org And if you have an idea for a future podcast series topic, just email us at info@aphasiaaccess.org And thanks again for your ongoing support of Aphasia Access. Arla, Jessica, thank you so much. Thank you.    References and Resources  UNM Neuro Choir: https://www.youtube.com/watch?v=zQuamJgTVj8&list=PLy586K9YzXUzyMXOOQPNz3RkfRZRqtR-L&index=5 https://www.youtube.com/watch?v=guU_uRaFbHI&list=PLy586K9YzXUzyMXOOQPNz3RkfRZRqtR-L&index=6 https://www.youtube.com/watch?v=Q4_0Xd7HNoM&list=PLy586K9YzXUzyMXOOQPNz3RkfRZRqtR-L&index=7   www.singwell.org Good, A., Kreutz, G., Choma, B., Fiocco, A., Russo, F., & World Health Organization. (2020). The SingWell project protocol: the road to understanding the benefits of group singing in older adults. Public Health Panorama, 6(1), 141-146. Good, A., & Russo, F. A. (2022). Changes in mood, oxytocin, and cortisol following group and individual singing: A pilot study. Psychology of Music, 50(4), 1340-1347.    

Hour 2: Fred shares his experience at an auction yesterday before Sue brings you today's Sue's News! Then, Brian Kilmeade joins Mark for their weekly conversation on all things politics. Later, Cathey Krane, executive director of the Greater St. Louis Chapter of the American Parkinson's Disease Association, and Kathy Schrader, co-chair of The Optimism Walk joins to share on the walk and how it will help raise funds for the incurable disease.

We spoke to Roopa Malhotra- Head of Customer & Digital, APAC, Zurich Insurance Group  LinkedIn: https://www.linkedin.com/in/roopamalhotra  APAC is a hugely diverse, exciting and complex landscape to manage with each country having its unique strengths and opportunities. We dug deeper into what it takes to drive digital transformation in the region, building on insurtechs innovation and incumbent's distribution strengths to build a solid insurance business, the importance of people focus a key sauce to success and much more!!   Roopa Malhotra is the Head of Customer & Digital, APAC for Zurich Insurance Group, and became a member of the Zurich Regional Committee in March 2022.  Ms. Malhotra is responsible for driving the digital strategy across the region with customer-focused propositions across channel partners and digital ecosystem players.  Before joining Zurich Group, Ms. Malhotra was Head of Digital for Chubb Insurance in the Asia Pacific. Over the years in the industry, she has gained well-rounded expertise in different aspects, including Natural Catastrophe risk management, digital product development, and partnership management.  Ms. Malhotra started her career in India as a financial analyst with the leading hedge fund - D.E. Shaw Group, before entering the insurance industry and holding positions with AIG and MSIG.   A passionate Diversity and Inclusion champion, Ms. Malhotra was also recognized as one of the rising female leaders in the region by Insurance Business Asia in 2021.  Ms. Malhotra holds an MBA in Finance with certifications in design thinking for innovation, and she is currently pursuing a Postgraduate Certificate in Sustainable Business from the University of Cambridge. She also actively volunteers at organizations like ‘All Hands and Hearts' for disaster relief and Singapore's ‘Alzheimer's Disease Association' and is a fitness enthusiast.  #asia #zurich #motorinsurance #fsbrew #claims #insurance #lifeinsurance #healthinsurance --- Send in a voice message: https://anchor.fm/fsbrew/message

In this episode, we explore gait impairment – a common symptom of Parkinson's that can involve slowness, muscle stiffness and freezing – and how it impacts people living with the condition. Our first guest is David Little, who lives in Carlisle, UK. Having previously worked as a firefighter, David was diagnosed with Parkinson's back in 2005. David has experienced first-hand the effects of gait impairment in his day-to-day life and says he's keen to challenge the misconceptions that can surround the condition. He is joined by Martina Mancini from Italy, who works as an assistant professor in the neurology department at the Oregon Health & Sciences University, in Oregon, US. Martina has worked on numerous studies about gait impairment – and has also investigated the role wearable devices can play in treatment. David and Martina discuss what causes gait impairment, share advice on managing these symptoms – and explore how current research is addressing this topic. This episode was funded by Charco Neurotech, the ­­company behind CUE1 – a wearable medical device designed to help alleviate gait impairment and support movement in people with Parkinson's. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, I speak with Anne Muskopf. Anne is the Director of the Charlotte & Richard Okonow Parkinson's Family Support Program at the Jewish Family and Children Services in Waltham, MA. We discuss the value that community programs bring to people with PD as well as discuss the value of support groups. You can find out more information about the Charlotte & Richard Okonow Parkinson's Family Support Program here: https://www.jfcsboston.org/Our-Services/Older-Adults/Parkinsons-Family-Support To find local information about support groups you can go to he American Parkinson's Disease Association, Parkinson's Foundation, Davis Phinney, or Michael J. Fox Foundation websites American Parkinson's Disease Association: www.apda.org Parkinson Foundation: www.parkinson.org Michael J. Fox Foundation: www.michaeljfox.org Davis Phinney Foundation: www.davisphinneyfoundation.org

This episode explores what it means to take part in Parkinson's research – from finding out more about clinical trials, to completing surveys about life with the condition. Our first guest is Amelia Hursey, who lives in London, UK. Amelia recently joined the European Parkinson's Disease Association – the only European Parkinson's umbrella organisation – as Research Manager, and is passionate about informing members of the Parkinson's community how they can learn more about research. She is joined by Karl Wouters, based in Beerse, Belgium, who has worked in corporate communications and disease management programmes. Since being diagnosed with Parkinson's six years ago, Karl has taken part in clinical trials – and is particularly enthusiastic about the importance of bridging the gap between researchers and patients. Also joining is Shafaq Ali, a dentist who live in West Yorkshire, UK. Diagnosed with Parkinson's in 2019, she is currently exploring the idea of taking part in research – and is looking for options to get involved that work for her. Amelia, Karl and Shafaq discuss how people in the Parkinson's community can find out more, explore some of the different ways of taking part in research – and share why asking questions is key. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

On this episode of CoRDS Cast, Alyssa sits down with Terry Thompson, Jameson Parker, Ed Meyertholen, and Chris Grunseich with the Kennedy's Disease Association. Kennedy's Disease is a defect in the ‘X' Chromosome, and it makes testosterone almost a poison to the body. The disease is Spinal Bulbar Muscular Atrophy; more commonly known as Kennedy's Disease. Please tune in to listen to each heart felt story, and why they are each involved in rare disease research today. If you would like more information on Kennedy's Disease or have any questions, please visit: https://www.kennedysdisease.org/ Enjoy!

This episode delves into the gender gap in Parkinson's research. It's estimated that three million women worldwide are living with the condition – but are their specific needs being properly addressed in scientific studies? It's a topic that is important to our guests, Dr Annelien Oosterbaan – a physician-researcher from the Netherlands – and retired family physician Dr Soania Mathur from Toronto, Canada. Both Annelien and Soania contributed to a recent study exploring gaps in awareness about sex and gender differences in Parkinson's. The paper, “Unmet Needs of Women Living with Parkinson's Disease”, highlights how women's experiences of the condition have been an “overlooked field” – and includes recommendations to help tackle the problem. In their conversation, Annelien and Soania discuss the areas they think have been neglected in Parkinson's research – while sharing insights from their personal experiences of life with the condition. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

An estimated three million women around the world are living with Parkinson's. But historically, their specific needs and experiences have been neglected – leading to disparities in diagnosis, treatment and medication. In this episode, Dr Lucía Ferro joins us from Barcelona, Spain. Diagnosed with Parkinson's three years ago, she has since become passionate about raising awareness of the unique challenges that face women with the condition. Joining her for an open conversation is US-based boxing coach and former engineer Lori DePorter. Referring to her own diagnosis as a “perfect storm of events”, Lori has found ways to help manage Parkinson's – and its impact on other aspects of her life. Lucía and Lori discuss their personal experiences – from health and work, to family life – and feeling represented in the community. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

The more we've talked to people living with Parkinson's, the more we've learned about the impact of compulsive and impulsive behaviours. A potential side effect of dopamine agonists (that is, commonly prescribed Parkinson's medications that mimic dopamine in the brain), these might include compulsive gambling, shopping or hypersexuality. In this episode, UK-based Vicki Dillon shares her own difficult experience of impulsive behaviours, which saw her personality change while her job, finances, reputation and family life suffered. She is joined by Dr Angelo Antonini, an academic neurologist from Italy who has around 30 years of experience supporting people with Parkinson's. He shares his perspective on approaching dopamine agonists – and treating his patients with care and empathy. In their conversation, Vicki and Angelo discuss the implications of dopamine agonists, how to address compulsive and impulsive behaviours – and why awareness about the issue is key to overcoming stigma and helping people with Parkinson's. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care!

In our second episode on deep brain stimulation, two guests discuss what life is like after having DBS surgery – from symptoms and charging the device, to check-ups and body image. Our first guest is Peter Schielzeth, a 58-year-old retired Chief Operating Officer, who now does pro bono work for a start-up. Peter lives in Germany with his husband, as well as his pet dog Basti. Peter was diagnosed with Parkinson's in 2014 – and says that taking the decision to have DBS four years later has had a significant impact on his experience of tremor. He talks to Louise Ebenezer, a Parkinson's disease nurse specialist based in Wales, UK. Louise's role includes meeting with people who've been diagnosed with the condition – and discussing referrals for treatments like deep brain stimulation. She describes her job as the best she's ever had – and says she now can't imagine working in any other area. This episode was funded by Abbott, who is dedicated to helping people live more fully by transforming the future of healthcare through life-changing technologies and products. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, two guests discuss everything there is to consider when making the decision about deep brain stimulation, or DBS. Here to tell us all about her experience is Cathy Molohan, an Irish-born Parkinson's campaigner based in Germany. Diagnosed with the condition in 2012, Cathy underwent DBS surgery nearly two years ago to address issues with tremor. Joining her is neurosurgeon Keyoumars Ashkan from the UK, who is Professor of Neurosurgery at King's College Hospital in London. With many years' experience supporting patients through DBS, he shares his own perspective on how to prepare for the surgery. This episode was funded by Medtronic, a medical device company working on groundbreaking healthcare technology solutions for the most complex and challenging conditions. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

Thursday 12.23.21at 6:00 EST on Radioparkies.com we had a conversation with Karen Frank. Karen is a retired Certified Registered Nurse Anesthetist and diagnosed with Parkinson's in 2018 She's been working with the American Parkinson's Disease Association starting a Young Onset Support Group. Additionally, she's also with the Davis Phinney ambassadorship program Karen co-founded along with Beca Miller and Kat Hill, Hospital Equity for those living with Parkinson's (HELP), it's an advocacy group focused on improving health care for Parkinson's patients. Plus, much more! Get to know Karen and catch some great Christmas tunes after the interview.

Ever since we first started recording the Parkinson's Life podcast, we've been asking our guests the same three questions, designed to get to the heart of what it's like to live with Parkinson's. Describe Parkinson's in three words. What gets you through the day? What has Parkinson's given you – and what has it taken away? How would you answer them? In this end of year special, for the first time, we share answers from guests across the series – whose perspectives range from funny to sad to angry, and everything in between. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, we're investigating what it means to pursue passions while living with the condition. Our first guest is Trevor Woollard, who lives in Buckinghamshire, UK. Trevor was inspired by street art and graffiti he saw in New York to pick up a paintbrush – a pursuit that led him to set up a non-profit called ‘Parkinson's Art' to support creative projects from people in the community. He says his own artistic style, and what art means to him, has evolved as the condition has progressed. Trevor is joined by Kitty Fitton, a blogger and comedian based in New Zealand. Kitty took her first steps into stand-up when she was asked to speak at a seminar, and her comedy often focuses on her everyday life, her family and her experience of living with Parkinson's. In their conversation, Kitty and Trevor talk about staying motivated in the face of apathy, whether being diagnosed with Parkinson's has led them to new interests and creative approaches – and how pursuing their passions has helped them forge connections with others. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, four guests join us virtually from around the world to discuss the ways life has changed during the pandemic, how they have managed – and the lessons to be learned from Covid-19. Our first guest is Jens Greve from Germany, who was diagnosed with Parkinson's in 2013 – and who, despite the challenges of the pandemic, has found solace in “rediscovering” family time. He is joined by Clare Addison from the UK, who has experienced the pandemic from contrasting angles as a neuroscience-specialised nurse who has herself lived with Parkinson's since 2016. Alongside them is Fulvio Capitanio, an Italian based in Spain, who has worked hard to overcome the condition's obstacles through lockdowns and social distancing mandates. And Maren Neumann-Aukthun, who joins us from Germany, shares why the connections she has seen being made during the pandemic help her to feel optimistic about the future. This episode was funded by Kyowa Kirin International, the specialty pharmaceutical company engaged in the treatment of unmet therapeutic needs. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Date of Preparation: November 2021. KKI/INT/IST/0250

In this episode of the Ulysses Neuroscience Podcast, we discuss the challenges and the joys found in life with Parkinson's Disease from a patient's perspective. We chat with Gary Boyle, who received a diagnosis of ‘Young Onset' Parkinson's Disease in 2009 at the age of 44. In the years that have passed since, Gary has become a champion for an ‘interdisciplinary' approach to dealing with Parkinson's, and all other neurological conditions. Having previously been a Board member of the Parkinson's Association of Ireland for two years, this year, Gary was elected as a Board member of the European Parkinson's Disease Association and has made it his mission to drive patient advocacy forward, so that in all medical consultations the patient is always placed first and is listened to in a way that fosters two-way conversation.

Continuing our discussion about Motor Neuron Disease, Fran was joined Lillian earlier this morning.

In this episode, we're looking at the relationship between Parkinson's and fitness – and how to keep your body moving with the condition. A host of research highlights the importance of physical activity for people living with Parkinson's. But as time goes on, the condition can create new obstacles for those looking to keep up an exercise regime. So how can people with Parkinson's stay fit? Our first guest is Mirjam Holzel from the Netherlands, who was diagnosed with Parkinson's seven years ago. Since her diagnosis, Mirjam's relationship to fitness has encompassed a hike up Mount Kilimanjaro and immobility caused by back pain – which she has worked hard to overcome. She is joined by Mariella Graziano, an Argentinian based in Luxembourg who has been a physiotherapist for more than 30 years. Determined to improve the life quality of people with Parkinson's, she helps her patients to find the exercise routines that work best for them. In this episode, Mirjam and Mariella discuss the importance of fitness for people with Parkinson's – and share tips to help those with the condition to stay motivated and empowered to exercise. This episode was funded by Bial, whose ‘Keep it on' website aims to inspire people with Parkinson's to get active every day. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

A Nenagh woman is taking on an impressive feat this weekend, as she will abseil 190 feet, to raise money for the Irish Motor Neuron Disease Association. Mary Lynch will abseil down the Generator's sky view tower in Dublin - it's twice the height of Croke Park's Hogan Stand. This is the first abseiling event down this iconic tower. She joined Fran to tell him all about the challenge.

Dr. Wild is a Professor of Neurology at University College London, a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery in London's Queen Square, and Associate Director of UCL Huntington's Disease Centre. He runs clinics in general neurology, neurogenetic movement disorders and Huntington's disease. He leads a team of researchers aiming to accelerate the development of new therapies to make a real difference for people impacted by Huntington's disease. Dr. Wild believes that “Scientists have a duty to make their work accessible and understandable to the people who need it most.” So in 2010, I co-founded HDBuzz, an online source of reliable, impartial, easy-to-understand information about HD research. HDBuzz is now the world's foremost HD research news source. In recognition of this, he was awarded the 2012 Michael Wright Community Leadership Award by the Huntington Society of Canada and the 2014 Research Award by the Huntington's Disease Society of America (which is where I first met Dr. Wild). He has authored 7 book chapters and over 80 peer-reviewed publications. He serves on the Medical Advisory Panel of the Huntington's Disease Association, the Association of British Neurologists Neurogenetics Advisory Panel, and the Translational Neurology Panel of the European Academy of Neurology. He is the Associate Editor of the Journal of Huntington's Disease and advises the steering committee to the UK All-Party Parliamentary Group on Huntington's disease. He is the co-Lead Facilitator of the European Huntington's Disease Network‘s Biomarkers Working Group. For more information about HDClarity, please visit www.hdclarity.net

Daniel speaks with the leader of his Young Onset Support Group, Barbara Mooney. Barbara is the American Parkinson's Disease Association's Georgia Chapter Coordinator. She brings her experience to highlight the importance of joining a support group. Topics that are covered include: 1. Determining some of the greatest struggles for those with Parkinson's. 2. Differences between a YOPD focused group and those that are older. 3. Support for those diagnosed whose family may not support the person or a spouse that may have left. 4. Support for care partners whose spouse may have shut down. 5. Ways to get involved in a local support group. 6. Resources for those wanting to learn more about Parkinson's disease and how to live the best life possible. Tap or click to learn more about the American Parkinson's Disease Association. Add your experience and suggestions to the conversation for this Parkinson's podcast. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me --- Send in a voice message: https://anchor.fm/parkinsonsandme/message

In this episode, we're focusing on Parkinson's and food. Food is such a huge part of our lives but how does the way you eat affect Parkinson's – and does Parkinson's impact the way you eat? Our first guest is Richelle Flanagan, a dietician based in Dublin, Ireland. Richelle, who was diagnosed with Parkinson's in 2017, says nutrition is a missing piece of the Parkinson's puzzle – and believes that most people with the condition don't know enough about it. She talks to Zarela Martinez, a chef, podcaster and author who was diagnosed in 2005. Zarela was born and raised in Mexico, but has lived in New York, where she opened her restaurant, since 1983. More recently, she has been working on a website called ‘A taste for life with Zarela', as well as her own podcast ‘Cooking in Mexican From A to Z', which she hosts with her son. In this episode, Richelle and Zarela discuss their top tips for cooking while dealing with Parkinson's symptoms, whether nutrition is a neglected part of treatment – and the joys of singing and dancing in the kitchen. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. If you like what you've heard, please rate and review – it helps make sure others can find us. And if you'd like to share your story with Parkinson's Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, we're looking at the impact of Parkinson's on dating, relationships and breakups. Being in a relationship comes with its own challenges, and these can become even harder to navigate when Parkinson's is thrown into the mix. When do you tell a potential partner about your condition? How do you handle symptoms that make it difficult to communicate, care or be intimate? Why do some relationships work while others fall apart? In this episode, two guests join us to discuss the highs and lows of looking for love while living with Parkinson's. Our first guest is musician Robbie Tucker from New Brunswick, Canada, who was diagnosed with young onset Parkinson's in 2005. Robbie ended a five-year relationship shortly before speaking with us – and is now figuring out how to be alone, but not lonely. He is joined by Heather Kennedy, a writer and Parkinson's advocate based in Northern California, US. Diagnosed in 2011, Heather says her condition contributed to the end of her marriage – but now appreciates new chances at love. In this episode, Robbie and Heather discuss how Parkinson's has impacted their approach to dating, the challenges they've faced in their relationships and their advice for others with the condition. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. For the latest research and information on Parkinson's, visit EPDA.eu.com. If you like what you've heard, please do take the time to rate and review – it helps make sure others can find us! And if you'd like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife) and Twitter (https://twitter.com/parkinsons_life).

In this episode, we're looking at the relationship between Parkinson's and loneliness. There are many reasons that people with Parkinson's might experience feelings of loneliness – these might include isolation because of communication challenges, stigma surrounding symptoms, and difficulties explaining the realities of the condition to anyone who hasn't experienced it themselves. A lot of this has been exacerbated by the coronavirus pandemic – as social distancing, self-isolation and lockdowns have made it harder to connect. Our first guest is Wytze Russchen, who was diagnosed with Parkinson's in 2008. Before moving to Spain, Wytze had a fast-paced career as a lobbyist in Belgium – but says that his pace of life has slowed down since diagnosis. He's experienced mental health symptoms associated with Parkinson's – and says that it's been difficult to communicate some of the challenges linked to the condition, even to close friends and family. He is joined by Dr. Indu Subramanian, a movement disorder neurologist based in Los Angeles, US. Indu recently worked on a study which suggested that people with Parkinson's who experience loneliness may have more severe symptoms and a worse quality of life. She also brings her interest in yoga, mindfulness and other alternative treatments to the discussion. In this episode, Wytze and Indu discuss why connecting with others is so important, how to find ways of coping with loneliness – and why it's vital to learn to appreciate the little things. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing, using digital or innovative solutions. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com. If you like what you've heard, please do take the time to rate and review – it helps make sure others can find us! And if you'd like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife/) and Twitter (https://twitter.com/parkinsons_life)

In this episode, which has been initiated and funded by Britannia Pharmaceuticals, we're looking at what it means to reach an advanced stage of the condition. Because Parkinson's disease is so individualised, its progression is not black and white. The term ‘advanced' Parkinson's generally refers to the stage at which symptoms have a bigger impact on day-to-day life. At this stage, medications may not be as effective and people with the condition may begin to rely more on care. Our first guest is Colin Cheesman, a former local authority chief executive based in Chester, UK, who at 74 has lived with Parkinson's disease for two decades. Colin has been able to maintain a good quality of life but in the past few years, his Parkinson's symptoms – such as involuntary movement and loss of balance – have become more challenging. He is joined by Dr Nishantha Silva, a geriatrician based in Grantham, UK, who has specialised in Parkinson's disease for 10 years. As a doctor, Nishantha is motivated by the experiences of his own father, who lived with the condition – and strongly believes that the right care can ensure long, fulfilling lives for people with Parkinson's. Parkinson's Life magazine is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on Parkinson's, visit EPDA.eu.com. If you like what you've heard, please do take the time to rate and review – it helps make sure others can find us! And if you'd like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife) and Twitter (https://twitter.com/parkinsons_life) Message from our sponsor: The content of this podcast was up to date and accurate at the time of recording in June 2021. The views expressed in this episode represent the speakers' own opinions and experiences. Speakers may express personal opinions that are not necessarily shared by Britannia Pharmaceuticals. Content from this episode has been reviewed by Britannia to ensure compliance with the ABPI and EFPIA Codes of Practice for the Pharmaceutical Industry. Any adverse events discussed within this podcast have been reported to the regulatory authorities. All adverse events should be reported to the relevant regulatory authority.

The American Parkinson’s Disease Association Virginia Chapter is hosting its Virtual Optimism Walk May 22. Participants may register online at http://APDAParkinson.org/va. The event is one of three virtual walks happening on the same day and part of a nationwide series of Optimism Walks that are designed to mobilize and inspire people to help end = Parkinson’s disease. About one million people in the United States live with PD. Participants in the APDA Virginia Virtual Optimism Walk will join fellow walkers from Optimism Walks taking place in Massachusetts and the Northwest. After an online opening ceremony and celebration, participants in all three...Article LinkSupport the show (http://henricocitizen.com/contribute)

In this episode, we look at the relationship between Parkinson's and sleep. We speak to Cormac and Mary Mehigan, a couple based in Limerick, Ireland, who've been married for nearly 25 years. Cormac was diagnosed with Parkinson's two years ago but has experienced active dreaming and sleeplessness for around six years. They are joined by Brian Magennis, a Parkinson's advanced nurse practitioner in Dublin. Brian is one of only four specialist Parkinson's nurses in the whole of Ireland – and has a close personal connection to the condition as his father was diagnosed with Parkinson's at the age of 28. In this open, honest – and sometimes emotional – conversation, Cormac and Mary discuss how these symptoms affect their everyday lives and Brian shares his advice on getting a good night's sleep. The Parkinson's Life podcast is produced by Speak Media on behalf of the European Parkinson's Disease Association, the leading voice for Parkinson's in Europe. For the latest research and information on how to improve your sleep with Parkinson's, visit EPDA.eu.com/sleepwell. If you like what you've heard, please do take the time to rate and review – it helps make sure others can find us! And if you'd like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife/) and Twitter (https://twitter.com/parkinsons_life)

In recognition of Parkinson's Awareness month, Veronica Clark is featuring on the IASLT in conversation. Veronica is the current chair of the European Parkinson's Disease Association and a practicing Speech and Language Therapist in the UK.

Here is the Link to Donatehttps://apdaparkinson.donordrive.com/index.cfm...Welcome to “Rockin for a Cure”, an event to raise money for The American Parkinson’s Disease Association. All the money raised from tonight’s event is going directly to the people suffering from Parkinson’s disease. Thank you to all the musicians playing tonight.Sweet Water, The Mums, Paul Wirt, Last Nights Villain, Jackson Pines, Paul & The Tall Trees, Tyler Ramsey, Richard Stuverud, Stereo Embers, Carrie Akre, The Copper Trees, Black Circle, Robb Benson & Candle Box. All music being performed tonight is owned by the acts performing the song. The Touring Fan Live and “Rockin for a Cure” do not claim ownership to the songs.Visit www.TheTouringFanLive.com for more information.

Pharmacists can play an important role in a dental clinic by performing thorough health and medication histories and communicating with dental and medical providers involved in a patient's care.  Today's guest is Julie Charlestein who is the President and CEO of Premier Dental Products Company which develops, manufactures and distributes innovative dental consumables and devices for the oral health professional worldwide. Proud to be running a family-owned business, Julie is the first woman and the fourth generation of the Charlestein family to lead the company, which was founded by her great grandfather, Julius Charlestein, in 1913. Julie is leading Premier through its next evolutionary phase, driving relevance to the marketplace with a customer-driven mindset underpinned by a focus on technology, data, brand strength, and human capital. As Premier's President and CEO, Julie was voted one of The Top 25 Most Influential Women in Dentistry by Dental Products Report. She is known for her high-energy, inspirational leadership and ability to forge meaningful partnerships across the industry. Her depth of experience in running a family business, dynamic personality, and story-telling ability make her a sought-after speaker for industry events, conferences, and panel discussions. Highly-respected in the industry, Julie serves on the Board of Overseers for The University of Pennsylvania School of Dental Medicine, the Dean's Advisory Council of Temple University Dental School, the Board of ASDOH (Arizona School of Dentistry and Oral Health), and the Board of the Alliance for Oral Health Across Borders. Julie previously served on the Dean's Advisory Board of the School of Dental Medicine at Harvard University. Passionate about being involved in the community, connecting with her peers and serving others, Julie also is a member of The Young Presidents' Organization (YPO) and sits on the Board of Directors for the ALS (Lou Gehrig's Disease) Association. Connect with Julie:  Twitter handles are: @JCharlestein and @PremierDentalUS.  She can also be tagged at LinkedIn https://www.linkedin.com/in/julie-charlestein-368145ab/ Thank you Gil Bashew/ Finn Partners for this opportunity & interview.  For more information contact: Publisher@PharmacyPodcast.com  Call (412) 585-4001  Sponsored by UltiGuard Safe Pack The UltiGuard Safe Pack is the only pen needle product that comes with an all-in-one sharps container. Learn more about why UltiGuard Safe Pack is the best choice for your patients and your pharmacy. Learn more UltiGuard Safe Pack https://www.ulticare.com/ultiguard-safe-pack/podcast  See omnystudio.com/listener for privacy information. Learn more about your ad choices. Visit megaphone.fm/adchoices

Pharmacists can play an important role in a dental clinic by performing thorough health and medication histories and communicating with dental and medical providers involved in a patient's care.  Today's guest is Julie Charlestein who is the President and CEO of Premier Dental Products Company which develops, manufactures and distributes innovative dental consumables and devices for the oral health professional worldwide. Proud to be running a family-owned business, Julie is the first woman and the fourth generation of the Charlestein family to lead the company, which was founded by her great grandfather, Julius Charlestein, in 1913. Julie is leading Premier through its next evolutionary phase, driving relevance to the marketplace with a customer-driven mindset underpinned by a focus on technology, data, brand strength, and human capital. As Premier’s President and CEO, Julie was voted one of The Top 25 Most Influential Women in Dentistry by Dental Products Report. She is known for her high-energy, inspirational leadership and ability to forge meaningful partnerships across the industry. Her depth of experience in running a family business, dynamic personality, and story-telling ability make her a sought-after speaker for industry events, conferences, and panel discussions. Highly-respected in the industry, Julie serves on the Board of Overseers for The University of Pennsylvania School of Dental Medicine, the Dean's Advisory Council of Temple University Dental School, the Board of ASDOH (Arizona School of Dentistry and Oral Health), and the Board of the Alliance for Oral Health Across Borders. Julie previously served on the Dean's Advisory Board of the School of Dental Medicine at Harvard University. Passionate about being involved in the community, connecting with her peers and serving others, Julie also is a member of The Young Presidents’ Organization (YPO) and sits on the Board of Directors for the ALS (Lou Gehrig's Disease) Association. Connect with Julie:  Twitter handles are: @JCharlestein and @PremierDentalUS.  She can also be tagged at LinkedIn https://www.linkedin.com/in/julie-charlestein-368145ab/ Thank you Gil Bashew/ Finn Partners for this opportunity & interview.  For more information contact: Publisher@PharmacyPodcast.com  Call (412) 585-4001  Sponsored by UltiGuard Safe Pack The UltiGuard Safe Pack is the only pen needle product that comes with an all-in-one sharps container. Learn more about why UltiGuard Safe Pack is the best choice for your patients and your pharmacy. Learn more UltiGuard Safe Pack https://www.ulticare.com/ultiguard-safe-pack/podcast  See omnystudio.com/policies/listener for privacy information.

In this episode of the Coaching Youth Football podcast, we talk to Tony Mee, author of several books including his most recent, Through The Thirds. We discuss the process of planning a season's coaching syllabus, and how Tony works through the thirds up the pitch and then back again. Follow Tony Mee on Twitter - @coachtonymee Follow Mike on Twitter - @youthcoachmike Join the Coaching Youth Football page here - www.facebook.com/coachyouthfootball You can buy Tony's new book directly, and in doing so, you will help us raise even more money for the Huntington’s Disease Association and allow a higher percentage to go to the Huntington's charity this book supports - buy here.

Rachel and Hannah sit down with Rachel's mom, Kim, to discuss Lupus and Behçet's. May is Lupus and Behçet's awareness month. These are known as invisible diseases. Kim (Rachel's mom) and Valerie (Hannah's mom) tell people about Motherhood. ABDA (American Behçet's Disease Association): https://www.behcets.com/basics-of-behcets/ Lupus Foundation of America: https://www.lupus.org __________________________ Follow @whatIdliketotellpeople on Instagram, Twitter, Facebook, and LinkedIn. Hit "Subscribe" to get our latest episode. Don't forget to rate this podcast. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

Janelle Capra, Executive Director of the Alzheimer’s Disease Association of Kern County (ADAKC) and owner of Capra PR, is on the Small Business Celebration podcast this week and she’s going to guide us in the importance of: 1. How to “Prepare, Pitch, and Persuade” to get the media attention your business deserves. 2. How a single word can set the direction of your business. 3. How serving others can take you steps toward success!

Attorney-CPA Joe Cordell and co-host Susan Arthur are joined by Debbie Guyer, the director of the Greater St. Louis chapter of the American Parkinson's Disease Association to discuss Parkinson's disease and its impact on the senior community. Debbie talks about Washington University's leading research in the field of Parkinson's disease, as well as the causation […] The post Understanding Parkinson's Disease [Episode 106] appeared first on Joseph E. Cordell.

Can we ever know what causes a chronic disease? In this episode, I’m joined again by Dr. Shoshana Herzig to finish a three-part miniseries on Bradford Hill and Doll’s attempts to prove that smoking caused lung cancer. We’ll talk about the first prospective cohort trial in history, 1960s “Fake News” from tobacco companies, public spats with the most famous statistician of the 20th century, and the development of the Bradford Hill Criteria, a guideline, however imperfect, that gives doctors a blueprint to finally figure out what causes diseases. Sources: Crofton J, The MRC randomized trial of streptomycin and its legacy: a view from the clinical front line. J R Soc Med. 2006 Oct; 99(10): 531–534. Daniels M and Bradford Hill A, Chemotherapy of Pulmonary Tuberculosis in Young Adults, Br Med J. 1952 May 31; 1(4769): 1162–1168. Dangers of Cigarette-smoking. Brit Med J 1, 1518 (1957). Doll, R. & Hill, B. A. Lung Cancer and Other Causes of Death in Relation to Smoking. Brit Med J 2, 1071 (1956). Doll, R. & Hill, B. A. Smoking and Carcinoma of the Lung. Brit Med J 2, 739 (1950). Hill, A. The Environment and Disease: Association or Causation? J Roy Soc Med 58, 295–300 (1965). HOFFMAN, F. L. CANCER AND SMOKING HABITS. Ann Surg 93, 50–67 (1931). Keating C, Smoking Kills: The Revolutionary Life of Richard Doll. 2009. Morabia, A. Quality, originality, and significance of the 1939 “Tobacco consumption and lung carcinoma” article by Mueller, including translation of a section of the paper. Prev Med 55, 171–177 (2012). Ochsner, A. & bakey. Primary pulmonary malignancy: treatment by total pneumonectomy; analysis of 79 collected cases and presentation of 7 personal cases. Ochsner J 1, 109–25 (1999). Ochsner, A. My first recognition of the relationship of smoking and lung cancer. Prev Med 2, 611–614 (1973). Parascandola, M. Two approaches to etiology: the debate over smoking and lung cancer in the 1950s. Endeavour 28, 81–86 (2004). Phillips, C. V. & Goodman, K. J. The missed lessons of Sir Austin Bradford Hill. Epidemiologic Perspectives Innovations 1, 1–5 (2004). Proctor, R. Angel H Roffo: the forgotten father of experimental tobacco carcinogenesis. B World Health Organ 84, 494–495 (2006). Wynder, E. RE: “WHEN GENIUS ERRS: R. A. FISHER AND THE LUNG CANCER CONTROVERSY”. Am J Epidemiol 134, 1467–9 (1991).

It was February 2016 and Chef Daniel Jacobs' future was looking particularly bright. But when progressive muscle weakness necessitated a visit to his doctor's office, he found himself facing a medical blow: the diagnosis of Kennedy's Disease.In this week’s podcast, Jacobs talks candidly about his diagnosis, the challenges of living with a disease about which so little is known, and the deeply personal impact it’s had on his life and work. He also shares his motivation and goals in fund-raising for the Kennedy’s Disease Association. Along the way, we discuss his love for cooking, cheeseburgers and his unmatched lust for life.

Does smoking cause lung cancer? How could you ever know? The second in a three-part series on causality, I’m joined by Dr. Shoshana Herzig to discuss how Austin Bradford Hill and Richard Doll set out to try and answer this question -- and along the way revolutionized the way we think about what causes disease. In this episode, we’ll talk about the first double-blinded randomized controlled trial, the long shadow of tuberculosis, and why epidemiology is beautiful. Plus, a brand new #AdamAnswers about chest compressions! Please support Bedside Rounds by filling out the listener demographic survey: https://survey.libsyn.com/bedsiderounds Sources: Bost TC. Cardiac arrest during anaesthesia and surgical operations. Am J Surg 1952;83: 135-4 Council, T. Tobacco Smoking and Lung Cancer. Brit Med J 1, 1523 (1957). Crofton J, The MRC randomized trial of streptomycin and its legacy: a view from the clinical front line. J R Soc Med. 2006 Oct; 99(10): 531–534. Daniels M and Bradford Hill A, Chemotherapy of Pulmonary Tuberculosis in Young Adults, Br Med J. 1952 May 31; 1(4769): 1162–1168. Dangers of Cigarette-smoking. Brit Med J 1, 1518 (1957). Doll, R. & Hill, B. A. Lung Cancer and Other Causes of Death in Relation to Smoking. Brit Med J 2, 1071 (1956). Doll, R. & Hill, B. A. Smoking and Carcinoma of the Lung. Brit Med J 2, 739 (1950). Hill, A. The Environment and Disease: Association or Causation? J Roy Soc Med 58, 295–300 (1965). HOFFMAN, F. L. CANCER AND SMOKING HABITS. Ann Surg 93, 50–67 (1931). Hurt R, Modern cardiopulmonary resuscitation—not so new after all. J R Soc Med. 2005 Jul; 98(7): 327–331. Keating C, Smoking Kills: The Revolutionary Life of Richard Doll. 2009. Keith A, Three Hunterian Lectures ON THE MECHANISM UNDERLYING THE VARIOUS METHODS OF ARTIFICIAL RESPIRATION PRACTISED SINCE THE FOUNDATION OF THE ROYAL HUMANE SOCIETY IN 1774. (1909). The Lancet, 173(4464), 825–828. Kouwenhoven WB et al, Closed-chest cardiac massage, JAMA, JAMA. 1960;173(10):1064-1067. Morabia, A. Quality, originality, and significance of the 1939 “Tobacco consumption and lung carcinoma” article by Mueller, including translation of a section of the paper. Prev Med 55, 171–177 (2012). Ochsner, A. & bakey. Primary pulmonary malignancy: treatment by total pneumonectomy; analysis of 79 collected cases and presentation of 7 personal cases. Ochsner J 1, 109–25 (1999). Ochsner, A. My first recognition of the relationship of smoking and lung cancer. Prev Med 2, 611–614 (1973). Parascandola, M. Two approaches to etiology: the debate over smoking and lung cancer in the 1950s. Endeavour 28, 81–86 (2004). Phillips, C. V. & Goodman, K. J. The missed lessons of Sir Austin Bradford Hill. Epidemiologic Perspectives Innovations 1, 1–5 (2004). Proctor, R. Angel H Roffo: the forgotten father of experimental tobacco carcinogenesis. B World Health Organ 84, 494–495 (2006). Wynder, E. RE: “WHEN GENIUS ERRS: R. A. FISHER AND THE LUNG CANCER CONTROVERSY”. Am J Epidemiol 134, 1467–9 (1991).

Feliks Banel marking the centennial of the Seattle General Strike // Major Garrett on the government shutdown/ the 2020 race for the White House // Hanna Scott on a pair of death penalty bills in Olympia // Colleen O'Brien's dose of kindness -- Chik-fil-a makes a rare Sunday exception // Sports Insider Danny O'Neil on Edgar's ticket to Cooperstown/ the 2019 Mariners // Steven Pinker, author of Enlightenment Now // Carolyn Ossorio with the Charity of the Month -- American Parkinson's Disease Association

What the APDA has to offer American Parkinson’s Disease Association

1. Early predictors of mortality in parkinsonism and Parkinson’s disease: a population-based study 2. [What’s Trending]: Data from the Largest Natural History Study of Stiff Person Syndrome. In the first segment, Dr. Jeffery Ratliff talks with Dr. David Bäckström about his paper on Early predictors of mortality in parkinsonism and Parkinson’s disease. In the second part of the podcast, Dr. Jeffery Ratliff focuses his interview with Marinos Dalakas on Stiff Person Syndrome. DISCLOSURES:Dr. Jeff Ratliff has received speaker honoraria from Teva and US WorldMeds LLC; is the deputy editor for the Neurology Podcast; has been a consultant for UCB Pharmaceuticals, US WorldMeds LLC, Medscape, and Retrophin Inc; and has served on speakers' bureaus for Teva and US WorldMeds LLC. Dr. David C Bäckström holds patents for chemical compounds that may be developed as treatments for premenstrual dysphoric disorder, but has not received any personal compensation for the patents. Dr. David C Bäckström has received Research Support from Swedish Medical Research Council, grant number (K2013- 62X-15224-10-4) and unrestricted grant for Parkinson's disease research and has received foundation and societies research support from Erling Persson Foundation, Umeå University, Västerbotten County Council, King Gustaf V and Queen Victoria Freemason Foundation, Swedish Parkinson Foundation, Kempe Foundation, and Swedish Parkinson’s Disease Association. Dr. Marinos Dalakas serves the CIDP steering committee for Novartis and on DSMB for Baxalta and Octapharma, has received funding or served as a travel speaker honoraria for Merck/Serono, OCTAPHARMA, PFIZER AG. Dr. Marinos Dalakas has served on editorial board including Neurology, editorial board (5 years, not compensated), BMC Neurology (Section Editor, 5 years not compensated), Acta Myologica, editorial board (5 years, not compensated), Acta Neurologica Scandinavica editorial board (5 years, not compensated), and Therapeutic Advances in Neurology (Associate Editor; 4 years, compensated). Dr. Marinos Dalakas consultancies include work with Therapath, Baxter, Octapharma, CSL, Dysimmune Diseases Foundation and he has received research and institutional support from Thomas Jefferson University Neurology department or to Neuroimmunology Unit, University of Athens Medical School for research and education from: Merck-Serono, Genzyme, Novartis, Guillain-Barre/CIDP Foundation, Dysimmune diseases Foundation, CSL, Biogen and Newfactor.