Breast Cancer Conversations

Love the episode? Send us a text!In this episode, I had the pleasure of speaking with Nina Prol, an experienced oncology nurse and SurvivingBreastCancer.org's  amazing Pilates instructor. Nina has been a vital part of our community, offering free, virtual Pilates classes that are accessible to anyone.We dive into the benefits of Pilates, especially for those undergoing cancer treatment. Nina shared how Pilates can help manage the side effects of treatments like chemotherapy, radiation, and hormonal therapies by promoting gentle movement and honoring the body's capabilities. She introduced the concept of "exercise snacks," which are short, manageable bursts of exercise that can be easily incorporated into daily routines.Welcome to the conversation.SURVIVINGBREASTCANCER.ORGAttend a free virtual Pilates class:https://www.survivingbreastcancer.org/movement-mondaysAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Fit, Healthy & Happy Podcast Welcome to the Fit, Healthy and Happy Podcast hosted by Josh and Kyle from Colossus...Listen on: Apple Podcasts SpotifySupport the show

Love the episode? Send us a text!Genetic tests like 23andMe are perceived as a fun and engaging way to explore family history,  However, the implications of genetic testing extend beyond mere curiosity about ancestry; they touch on the very fabric of our lives and the lives of our loved ones. For those who discover they carry genes associated with increased cancer risk, like Lesser, the stakes are high. It raises questions about proactive measures, such as screenings or preventive surgeries, and how these decisions affect not only the individual but also their family members. Lesser's narrative illustrates the emotional complexity of being a previvor—someone who has not yet developed cancer but carries a genetic predisposition. The conversations around such decisions often involve family dynamics, as loved ones grapple with the implications of their own genetic risks and the potential need for testing.SURVIVINGBREASTCANCER.ORGAttend a free virtual yoga class:https://www.survivingbreastcancer.org/movement-mondaysAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Fit, Healthy & Happy Podcast Welcome to the Fit, Healthy and Happy Podcast hosted by Josh and Kyle from Colossus...Listen on: Apple Podcasts SpotifySupport the show

Love the episode? Send us a text!In the podcast episode, I speak with Kate Garcia and Jen Tipton, and  discuss  the significant role that yoga can play in the lives of breast cancer survivors and thrivers. Both Kate and Jen lead yoga classes for our SurvivingBreastCancer.org (SBC) community and they share their personal experiences and insights on how yoga can aid in healing and recovery.Restorative Yoga: Kate teaches restorative yoga classes that focus on gentle movements and breathing techniques. This style is particularly beneficial for individuals who may feel overwhelmed or disconnected from their bodies due to the stresses of cancer treatment. Kate emphasizes that restorative yoga can be challenging in its own right, as it requires participants to slow down and be present, which can be difficult in our fast-paced lives.DIEP Flap Yoga: Jen leads DIEP flap yoga classes specifically designed for individuals who have undergone DEIP flap surgery. This type of yoga addresses the unique physical challenges faced by those recovering from such surgeries, including tightness and discomfort in the chest and abdomen. Jen's personal experience with DIEP flap surgery allows her to connect with her students on a deeper level, providing tailored guidance and support.SURVIVINGBREASTCANCER.ORGAttend a free virtual yoga class:https://www.survivingbreastcancer.org/movement-mondaysAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, I, Laura Carfing, founder of survivingbreastcancer.org, delve into the critical topic of fertility preservation and genetic counseling for breast cancer patients. Joined by Alejandra Bernal, a genetic counseling student at the University of Pittsburgh, and Melissa Bourdius , a hereditary cancer counselor, we explore the intersection of cancer treatment, fertility, and genetics.Alejandra shares insights from her research on how patients are informed about the risk of infertility due to cancer treatments and the role genetic counselors can play in this process. She highlights the importance of asking the right questions and involving a multidisciplinary team to ensure patients receive comprehensive information about their options.Melissa discusses the genetic aspects of cancer, explaining how mutations in genes like BRCA1 and BRCA2 can increase cancer risk and affect family planning decisions. She emphasizes the importance of genetic counseling in helping patients understand their risks and make informed decisions about their treatment and future family planning.It's all here for you in today's episode! Resources:https://www.facingourrisk.org/support/insurance-paying-for-care/screening-and-prevention/fertility-preservation/overviewhttps://www.allianceforfertilitypreservation.org/fertility-risks-from-treatment/https://www.thechickmission.org/  Information about grants and advocacyhttps://worththewaitcharity.com/resources/patient-education/   Has practical patient resourcesSURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, host Laura Carfang welcomes Dr. Amy Morris, an ovarian cancer survivor and cancer researcher, to discuss navigating health and wellness post-cancer diagnosis. We delve into essential topics such as the side effects of treatments like chemotherapy, radiation, and hormonal therapies, including weight gain and the challenges of sudden menopause. Dr. Morris shares her unique insights from both her professional background in oncology and her personal journey as a survivor. Tune in for valuable information and support for those affected by breast cancer and their caregivers.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Kathleen Moss, a nutritionist from Portland, Oregon, who shared her journey with breast cancer. Kathleen's story is both unique and insightful, as she was diagnosed with lobular breast cancer after a decade of screening and monitoring a shadow in her left breast. She detailed her experience with DCIS, the challenges of detecting lobular breast cancer, and the eventual discovery of invasive cancer following her mastectomy.Kathleen provided an in-depth explanation of lobular breast cancer, highlighting its distinct characteristics and the difficulties in detection due to its non-lump formation. She also discussed the importance of advocacy and education, emphasizing the need for awareness around different breast cancer subtypes.We delved into her surgical decisions, including her choice to forgo breast reconstruction in favor of a Goldilocks mastectomy, and the emotional and physical impacts of these choices. Kathleen's advocacy work with the Lobular Breast Cancer Alliance and her efforts to support and educate others through local advocacy teams were truly inspiring.Kathleen also shared her personal experiences with her mother's breast cancer diagnosis and passing, and how it shaped her perspective on life and death. As we wrapped up, she updated us on her current health status and the ongoing surveillance for potential recurrence.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Dr. Kohli, the Director of Breast Surgery at Monmouth Medical Center in New Jersey. We delved into the multifaceted journey of breast cancer survivorship, emphasizing the importance of treating the whole person, not just the disease.Dr. Kohli shared her insights on the increasing incidence of breast cancer in younger women and the importance of focusing on the quality of life for long-term survivors. We discussed the initial overwhelming phase of diagnosis and treatment decisions, and how crucial it is to consider mental and emotional health alongside physical health.One of the key topics we explored was the decision-making process regarding surgery options—lumpectomy, mastectomy, and double mastectomy.  We also touched on the long-term management of side effects, particularly lymphedema. Dr. Kohli explained what lymphedema is, its risks, and the importance of early detection and proactive management. She introduced the use of bioimpedance spectroscopy for early detection and shared her approach to monitoring and managing this condition.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Love the episode? Send us a text!I had the pleasure of speaking with Dr. Thomas Francel, a plastic surgeon specializing in breast reconstruction.One of the key takeaways from our conversation was the importance of personalized care. Dr. Francel stressed that each patient's journey is unique, and decisions regarding reconstruction should be made based on individual circumstances, preferences, and medical needs. We also touched on the emotional aspects of recovery, sharing heartfelt stories of patients who found confidence and a sense of normalcy through successful reconstruction.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Dianne Faure, an attorney, author, teacher, advanced Eden energy medicine practitioner, and massage therapist. Dianne shared her incredible journey of using energy medicine to manage and overcome various health issues, including her own diagnosis with inflammatory breast cancer.Dianne's background is impressive. She has resolved multiple health issues such as chronic pain, allergies, rheumatoid arthritis, skin lupus, and connective tissue disease through the Eden Method. In April 2021, Dianne was diagnosed with inflammatory breast cancer, a rare and aggressive form of the disease. She decided to document her experience and incorporate her energy medicine tools to manage the treatment and its side effects. This journey led her to publish her memoir and self-help book, "Cancer and Energy Medicine, A Healing Journey," in 2024.During our conversation, Dianne explained the broad umbrella of energy medicine, which includes acupuncture, traditional Chinese medicine, yoga, and Reiki. She delved into her personal experience with breast cancer, from the initial diagnosis to the various treatments she underwent, including chemotherapy, mastectomy, and radiation.Dianne also shared how she used energy medicine to navigate the side effects of chemotherapy and other treatments. She emphasized the importance of self-advocacy and understanding one's body, especially when dealing with a complex and often misunderstood condition like inflammatory breast cancer.We discussed the concept of energy medicine in detail, including the nine energy systems, such as meridians, auras, and chakras. Dianne provided insights into how she assesses and balances these energy systems in her clients using techniques like energy testing and muscle testing.Dianne's book is a valuable resource for cancer patients, survivors, and their loved ones. It offers practical tools and techniques to manage the physical and emotional challenges of cancer treatment. The book is available on Amazon, Barnes & Noble, and other major retailers.This episode is a treasure trove of information for anyone interested in complementary approaches to cancer treatment and overall well-being. Dianne's story is a testament to the power of energy medicine and the importance of taking an active role in one's healing journey.For more information, visit survivingbreastcancer.org, where you can sign up for our mailing list, make a donation, and explore the 400+ programs we offer each year.Until next time, keep on thriving.Support the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Sandy L. Weisenberg, a self-described "one-breasted feminist" and author of "The Adventures of Cancer Bitch." Sandy shared her journey of being diagnosed with stage 2A breast cancer in 2007, undergoing a mastectomy and chemotherapy, and how she turned her experience into a powerful narrative through her writing.We delved into Sandy's inspiration for starting her blog, Cancer Bitch, and how writing became a therapeutic outlet for her. She discussed the importance of expressive writing and how it can be a tool for processing emotions and experiences, especially for those diagnosed with breast cancer. Sandy also shared practical advice for aspiring writers, including the use of writing prompts and the significance of revising one's work.We touched on the broader themes of breast cancer culture, the disparities in treatment, and the political statements behind choosing or not choosing reconstruction. Sandy emphasized the importance of finding a supportive community, whether through writing groups, classes, or organizations like Gilda's Club.Throughout our conversation, Sandy's humor and candidness shone through, making it clear why her work resonates with so many. Her insights into balancing personal experiences with privacy, and the therapeutic nature of writing, provided valuable takeaways for our listeners.Thank you, Sandy, for sharing your story and wisdom with us. And to our listeners, remember that your experience is unique and worth sharing. Keep on thriving, and join us next time on Breast Cancer Conversations. For more information and to access our free programs, visit survivingbreastcancer.org/events.Resources Mentioned: https://www.slwisenberg.com/works.htm https://www.survivingbreastcancer.org/healingthroughartSupport the show

Love the episode? Send us a text!Dr. Abram reshapes the common perception of palliative care, emphasizing that it should not be viewed solely as end-of-life support, but rather as an essential form of supportive care that can significantly improve patient outcomes and quality of life when integrated early. With over 20 years of experience at the Dana-Farber Cancer Institute, Dr. Abram is a leading expert in the palliative care needs of cancer patients and the author of the Comprehensive Guide to Supportive and Palliative Care for Patients with Cancer. She has been recognized with the prestigious Walther Cancer Foundation Supportive Oncology Award from the American Society of Clinical Oncology. Tune in to hear valuable insights from Dr. Abram about the importance of palliative care in the journey of cancer patients and their families.Support the show

Love the episode? Send us a text!Breast cancer is a deeply personal journey. As the landscape of breast cancer treatment evolves, understanding the surgical options available becomes crucial for patients navigating this challenging experience. In this episode, we speak with Dr. Yolanda Tamero, a breast surgical oncologist, who provides invaluable insights into the various surgical interventions available for those diagnosed with breast cancer. We talk about the different types of breast surgeries, the roles of various medical professionals involved, and the considerations that we should keep in mind when making decisions about our surgical treatment options. Support the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Stephanie S. Abbott, a remarkable individual who has navigated the complex worlds of both healthcare administration and cancer survivorship. Stephanie brings a unique perspective, having served in multiple leadership roles in healthcare, including Chief Experience Officer for Adventist Health and Division Vice President of Patient Experience for HCA.Stephanie shared her personal journey, from her diagnosis on November 12, 2021, to her experiences as a patient undergoing treatment. She highlighted the emotional and operational challenges she faced, offering invaluable insights into the friction points within the healthcare system. Stephanie's story underscores the importance of human connection and effective communication between patients and healthcare providers.Stephanie is also the author of the book Buried or Planted: 100+ Expert Insights from a Healthcare Executive's Journey as a Cancer Patient on Amazon below: https://www.amazon.com/Buried-Planted-Insights-Healthcare-Executives/dp/B0D4Q9QM78SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.https://www.survivingbreastcancer.org/takeahikeSupport the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, I had the pleasure of speaking with the incredible Dr. Amani Jambhekar, a board-certified general surgeon and medical director for surgical breast oncology at Christus St. Vincent in Santa Fe, New Mexico. Dr. Jambhekar shared her journey from Texas to New Mexico, driven by her commitment to women's health and her response to the Texas law SB8, which bans most abortions after six weeks of pregnancy.We delved into the significant impact of SB8 on women's healthcare, discussing how it has led to increased maternal mortality, healthcare professional shortages, and a more challenging environment for women seeking medical care. Dr. Jambhekar highlighted the broader implications of such legislation, emphasizing the need for evidence-based medicine and the importance of advocating for women's rights.Our conversation also touched on the pervasive issues of gender bias and microaggressions in the medical field. Dr. Jambhekar shared personal experiences of being underestimated and disrespected as a female surgeon, and we discussed the importance of mentorship and support among women in healthcare.We explored the critical need for better access to healthcare, particularly for breast cancer patients, and the disparities that exist in diagnosis and treatment. Dr. Jambhekar's insights into the challenges faced by women in healthcare and her dedication to empowering women both as patients and professionals were truly inspiring.As we navigate these complex issues, it's clear that advocacy, education, and support are essential. I encourage our listeners to engage in these conversations and support women's rights.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.https://www.survivingbreastcancer.org/takeahikeSupport the show

Love the episode? Send us a text!In this episode, I had the honor of speaking with Heather Salazar, an incredible woman whose journey through breast cancer led her to create the impactful nonprofit, Pink Ribbon Good. Heather's story is one of resilience, compassion, and dedication to helping others.Heather shared her powerful narrative, starting with her connection to Alexis, a young mother with metastatic breast cancer. Heather and her husband adopted Alexis's baby, Lexi, and cared for Alexis during her final months. Tragically, 18 months later, Heather herself was diagnosed with breast cancer. Despite the challenges, Heather emerged as a survivor and channeled her experience into founding Pink Ribbon Good.Pink Ribbon Good began with a mission to provide meals, house cleaning, rides to treatment, and peer support to breast cancer patients and their families. Heather's dedication and innovative approach have allowed the organization to grow exponentially, now serving nationwide and delivering over 1 million meals.Heather also discussed the importance of survivorship and the unique challenges it presents. She emphasized the value of living in the moment and being present for loved ones, lessons she learned from her own journey and from those living with metastatic breast cancer.We also touched on the operational challenges and triumphs of running a nonprofit, especially during the COVID-19 pandemic. Heather's story is a testament to the power of community, resilience, and the impact one person can make.To learn more about Heather's work and Pink Ribbon Good, visit pinkribbongood.org and follow them on social media.Thank you for tuning in to this heartfelt and inspiring episode. If you enjoyed it, please share it with your friends and family, and consider sending us some fan mail or tagging us on social media at survivingbreastcancer.org. Your support helps us continue to provide valuable resources and support to those affected by breast cancer.You can read Heather's story here: https://www.survivingbreastcancer.org/post/my-answer-to-cancerSURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.https://www.survivingbreastcancer.org/takeahikehttps://www.survivingbreastcancer.org/takeahikehttps://www.survivingbreastcancer.org/takeahikeSupport the show

Love the episode? Send us a text!In this episode of Breast Cancer Conversations, we delve into the complexities of living with a metastatic breast cancer diagnosis and explore the various diagnostic and treatment options available. Our panel includes Dr.  Groteluschen, a medical oncologist from Green Bay Oncology, Tammy, a patient living with metastatic breast cancer, and Dr. Covington, a breast radiologist and nuclear radiologist from the University of Utah.Dr. Groteluschen shares his approach to delivering heavy news to patients, emphasizing the importance of honesty, transparency, and hope. He discusses the nuances of different imaging techniques, such as CT scans and PET scans, and how they are used to monitor disease progression and inform treatment decisions. Tammy provides a personal perspective on her journey, highlighting the importance of advocating for oneself and seeking second opinions.Dr. Covington offers insights into the role of radiology in breast cancer care, explaining the differences between FDG PET and FES PET scans. He discusses how these imaging techniques help in identifying the extent and characteristics of the disease, which in turn guides treatment planning.We also touch upon the evolving landscape of breast cancer treatment, including the potential for nuclear medicine-based therapies and the importance of targeted therapy. The episode concludes with reflections from each panelist on what excites them most about the future of breast cancer oncology, from advancements in imaging and targeted therapies to the ongoing development of clinical trials.This episode is a deep dive into the intricacies of metastatic breast cancer, offering valuable insights for patients, caregivers, and healthcare professionals alike.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.https://www.survivingbreastcancer.org/takeahikehttps://www.survivingbreastcancer.org/takeahikeSupport the show

Love the episode? Send us a text!In the realm of breast cancer treatment, nurse navigators play a pivotal role in guiding patients through the complexities of their diagnosis and treatment. This episode of "Breast Cancer Conversations" features insights from Colleen Beguin, Amanda Kuller from Honor Health and Lourdes Heras, a patient advocate at SurvivingBreastCancer.org, who share their experiences and perspectives on the importance of nurse navigation.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.https://www.survivingbreastcancer.org/takeahikeSupport the show

Katrece's journey began in her late 30s, a time when many women may not consider themselves at risk for breast cancer. With no known family history of the disease, she was caught off guard when she noticed a physical change in her body—one breast appeared larger than the other. This seemingly benign observation led her to seek medical attention, a decision that would prove to be pivotal in her healthcare journey. The initial visit to her family doctor, although met with some skepticism regarding the urgency of her symptoms, highlighted the importance of being proactive. Despite not feeling a lump during a self-exam, Katrece's instincts pushed her to pursue further evaluation, demonstrating that awareness and self-advocacy are crucial components of health management.You can listen to Katrece's full story with IBC in episode 242. Today we go beyond diagnosis and treatment to survivorship! Katrece shares her story 11+ years from that initial call informing her she had breast cancer. Today she is living with no evidence of disease! SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

I had the privilege of speaking with Katrece Nolan, a breast cancer survivor from Northern Virginia. We had such a lovely and long conversation that I ended up producing this episode in two parts. Today we dive into Katrece's compelling story with inflammatory breast cancer (IBC). Diagnosed in her late 30s, Katrece's story began with a simple observation of asymmetry in her breasts, which led her to seek medical attention. Despite initial challenges in getting timely appointments, her persistence paid off when she was diagnosed with IBC, a rare and aggressive form of breast cancer.Katrece detailed the rigorous treatment process, which included chemotherapy, surgery, and radiation, emphasizing the importance of having knowledgeable doctors and advocating for oneself. She also highlighted the emotional and logistical challenges of managing a cancer diagnosis while raising three young children, and the critical role of community and family support.Katrece's story is a powerful reminder of the importance of self-advocacy, the need for specialized knowledge in treating rare cancers. In part II (EPS 423), we celebrate Katrece's survivorship of 11+ years and what survivorship and surveillance look like for those diagnosed with breast cancer. SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In today's episode, we delve into the world of PET scans and other imaging modalities crucial for accurate diagnosis and staging of breast cancer. We are joined by two incredible guests: Dr. Kiser, the Medical Director of Molecular Imaging for Carilion Clinic, and Pam Kohl, a patient advocate living with metastatic breast cancer.Dr. Kiser provides an in-depth explanation of PET scans, particularly focusing on FDG and FES (also known as Cerianna) PET scans. FDG-PET scans use radioactive glucose to highlight cancerous tissues, while FES-PET scans target estrogen receptors, making them highly specific for ER-positive breast cancer. Dr. Kiser emphasizes the revolutionary impact of these imaging techniques in both diagnostics and therapeutics.Pam shares her personal experience with breast cancer, highlighting the importance of advocating for oneself. Diagnosed with early-stage breast cancer in 2009, Pam experienced a recurrence in 2017, which led to a stage 4 metastatic diagnosis. Her story underscores the critical role of PET scans in detecting metastasis early and informing effective treatment plans. Pam's experience with FES-PET scans has been particularly transformative, allowing her medical team to tailor her treatment precisely to her cancer's characteristics.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In this episode of Breast Cancer Conversations, we delve into the critical topic of nuclear medicine and its role in breast cancer diagnosis and treatment. As a breast cancer survivor and advocate, I understand the anxiety that comes with scans involving radioactive tracers. Today, we aim to demystify this process and highlight its importance.I am joined by Dr. Kiser and Pam Kohl, who provide insights from both medical and patient advocate perspectives. We discuss the safety and precautions associated with nuclear medicine tests, particularly focusing on the issue of extravasation—when the radioactive material leaks into surrounding tissues instead of staying in the vein.Throughout the episode, we stress the importance of patient advocacy and being informed about the procedures and technologies available. We hope this conversation empowers our listeners to ask the right questions and seek the best possible care.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In this episode we are joined by Dr. Katherine Benedict, a Clinical Psychologist at Stanford University, along with patient advocates Delta James and Roxana Guerrera, to discuss the topic of dating, sex, and love after a breast cancer diagnosis. We highlight the importance of normalizing the challenges and complexities of intimacy post-diagnosis. Tune in for insightful advice and empowering stories from survivors, those living with MBC, and patient advocates.SURVIVINGBREASTCANCER.ORGAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In this episode of Breast Cancer Conversations, we had the pleasure of speaking with Dr. Laura James, a naturopathic oncologist based in Washington State. Dr. James provided a wealth of information about the role of naturopathic oncology in breast cancer care, emphasizing the importance of integrative medicine. She clarified the distinctions between integrative, complementary, and alternative care, and highlighted the collaborative approach she takes with conventional medical teams to support patients through their cancer journey.We discussed the critical role of the "four cornerstones" of health—diet, exercise, sleep, and stress management—in supporting overall well-being and reducing the risk of cancer recurrence.We also delved into the emotional and psychological aspects of a breast cancer diagnosis, particularly the societal pressures and internalized guilt that many women face. Dr. James emphasized the need for setting boundaries and practicing real self-care, which she defines as self-preservation; it is not selfishness. Throughout our conversation, Dr. James highlighted the importance of building a comprehensive care team and the challenges of integrating naturopathic oncology into conventional cancer care. She shared her experiences in developing relationships with conventional doctors and the ongoing effort to gain acceptance for integrative approaches.This episode is a must-listen for anyone looking to understand the holistic approach to breast cancer care and the importance of addressing both the physical and emotional aspects of the disease. Dr. James's expertise and compassionate approach offer valuable insights for patients, caregivers, and healthcare providers alike.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In today's episode, host, Laura Carfang speaks with breast cancer survivor Briana Rickertsen. Briana was diagnosed with invasive ductal carcinoma in July 2020 at age 35. She underwent chemotherapy, surgery, radiation, and additional treatments due to a HER2 positive tumor. Briana discovered she has a BRCA2 mutation, leading to further preventive measures, including ovary removal.Pre-Diagnosis, Briana was an active person, engaging in activities like yoga, cycling, hiking, and running.  During Treatment Briana used the Peloton app daily for mental health and physical activity, adapting her routine based on her energy levels and treatment schedule. Post-Treatment, Briana emphasizes the importance of movement in managing fatigue and overall well-being, advocating for small, consistent efforts.Timestamps: [00:03:23] Breast cancer diagnosis in 30s.[00:09:44] Bone health and treatment decisions.[00:11:45] Discussing fertility options during treatment.[00:14:17] Genetic testing and surprises.[00:19:01] Coping through daily exercise.[00:23:41] Exercise in cancer treatment.[00:25:18] The power of walking during treatment.[00:29:15] Exercise dosing in cancer treatment.[00:34:24] Strength training for beginners.[00:38:06] Lymphedema and strength training.[00:41:13] Weightlifting and health journey.[00:45:03] Finding joy in exercise.[00:45:53] Reframing approach to daily activities.Support the Show.

Meet the SBC Early Stage Leadership Team: Meghan Staskal-BradtJ, ulie Cottrill, Carol Collins, Meghan Aycock, Pooja Jain & & Marcee RaffelThe team is a powerhouse of volunteers who have been instrumental in driving various projects and initiatives at survivingbreastcancer.org.Today's episode provides an opportunity for you to meet these volunteers and hear their personal stories of being diagnosed with breast cancer and advice for those newly diagnosed or dealing with survivorship.From finding lumps to navigating treatments, weight gain, and post-treatment challenges, our panelists share candid insights into life after a breast cancer diagnosis. Join us as we discuss the highs and lows of survivorship and the importance of self-care.Support the Show.

In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Jessica Balidad, a remarkable woman who has turned her personal experience with breast cancer into a powerful advocacy platform. Jessica, a five-year survivor of stage 2B invasive ductal carcinoma, shared her journey from diagnosis to becoming a passionate advocate for women's health.Jessica's story is both inspiring and educational. She discovered her cancer through a self-breast exam, a practice she had been diligent about since having a benign tumor removed in college. Despite her family history of breast cancer, she faced challenges in getting her concerns taken seriously by medical professionals, highlighting the importance of self-advocacy and awareness.Jessica's experience led her to create the Feel For Your Life app, a free mobile application designed to educate women on how to perform self-breast exams, track changes and set reminders for regular checks. The app also includes a new AI feature, Breastfriend AI, which helps users understand their medical reports and prepare questions for their doctors, making the often overwhelming medical information more accessible and less intimidating.We also discussed the broader implications of breast cancer awareness and education, particularly among younger populations. Jessica has been instrumental in legislative efforts to include self-exam education in high school curriculums in Tennessee, aiming to empower the next generation with the knowledge to take control of their health.Additionally, Jessica shared insights into navigating the complexities of medical insurance, offering practical advice on how to handle claim rejections and advocate for necessary treatments.This episode is a testament to the power of turning personal pain into a purpose-driven mission. Jessica's work through Feel For Your Life is making a significant impact, providing essential tools and support for those affected by breast cancer.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

Listening to your body is crucial, especially during times of illness or recovery. In today's episode, Michelle Sandlin talks about her unexpected diagnosis despite leading a very healthy lifestyle.  We discuss the significant role of genetic testing in Michelle's life, revealing her BRCA1 gene mutation and its implications not only for her but also for her family members, including her daughter who chose to take preventive measures. Michelle shares how writing helped her process her experience, manage her emotions, and connect with others. Her book, Cancer Don't Care,  aims to inspire and support others going through similar challenges and can be found on  Amazon, available in hardback, paperback, and Kindle editions. For more inspiring stories, stay tuned to Breast Cancer Conversations.Note: The information shared in this podcast is based on personal experiences and is not intended as medical advice. Always consult with your healthcare provider for medical guidance.Thank you for tuning in, and don't forget to subscribe to our newsletter at survivingbreastcancer.org/subscribe for more updates and inspiring stories. Keep thriving, and see you in the next episode!Topics Covered:[00:10:36] Being diagnosed with cancer.[00:13:55] Exercise and cancer benefits.[00:19:24] Meditation during cancer journey.[00:22:41] Genetic testing and family impact.[00:29:02] Making decisions about surgeries.[00:32:22] Michelle's journey with writing.[00:39:29] Choosing positivity during adversity.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

The heart of today's episode is the poetry readings from our community members. Each poet shared their personal experiene with breast cancer, touching on themes of struggle, resilience, and hope. From Brookshire McDonald's reflections on the growth of our community to Farhana's poignant farewell to her breasts, each piece brings unique insights and emotions.Joely from New Jersey shared her experience compiling an anthology of breast cancer-related poetry, emphasizing the therapeutic power of writing. We also heard from Cindy, whose fierce poem likened the battle with cancer to a warrior's fight and Evelina Buendia gives voice to The Warrior Cry, to name a few. The episode concluded with a collaborative poem created by our community, symbolizing our collective strength and support for each other. It was a powerful reminder of the support network that survivingbreastcancer.org strives to provide.Thank you for joining us for this moving episode. Poets:Brookshire McDonald - Beyond the DreamFarahana Kassam, Alas, My Boobs AdieuJoely  Serino, Hearts in the SandCindy Farmer, To the AmazonsPooja Jain, Sleepless NightsEvelina Johnson Buendia, In the MiddleSue  Krejci, SurvivorshipLaura Carfang, The Night TrainGloria Shoon, Reflection After MeditationLourdes Heras, Solitude and SupportWilliam Laferriere, DesperationEvelina Jonshon Buendia, The Warrior CryJoely  Serino, Cancer During CovidElisa Herrares, FlowingWilliam Laferriere, Waiting for HerculesA tribute to Ilene Kaminski,  Memory of HopeElle  Veitch, SistersAll, Group Poem CreationAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the Show.

In today's episode, we tackle a highly requested topic: navigating work while living with MBC. We explore the complexities of managing a career, discussing when to work, when to consider disability, and how to maintain health insurance and benefits amidst a metastatic diagnosis.Our guest, Abigail Johnston, leads our MBC webinar series and has assembled an incredible panel of women who share their firsthand experiences of working with MBCOur panelists include:Holly, from Portland, who was diagnosed de novo metastatic and continues to work a physically demanding job at the Humane Society.Lisa Hahn, from Alexandria, Virginia, who works for Pew Charitable Trust and has been living with MBC since 2019.Dawn McDaniel, a psychologist who founded Mystical Energies and was diagnosed with MBC in April 2023.Wendy Casper, a psychologist and professor at the University of Texas at Arlington, who has been researching work-life balance and cancer diagnosis communication.The panelists share their unique stories, from disclosing their diagnosis to requesting reasonable accommodations under the Americans with Disabilities Act. They also discuss the importance of self-care and the challenges of balancing work with treatment schedules.We highlight resources like cancerandcareers.org and triagecancer.org, which provide invaluable guidance for those navigating cancer in the workplace. These organizations offer state-specific resources and federal protections under the ADA.Each journey is unique.  No one is alone in this experience. We encourage our listeners to reach out with topics or to share their stories on our show.Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Awareness and resources for safety are crucial when it comes to addressing issues of domestic violence, especially in the context of breast cancer.  In today's episode we share personal experiences, warning signs, and resources for those who may be facing this difficult situation.Lourdes Heras, a breast cancer survivor, shares her experience of dealing with both a health issue and a violent intimate partner. She highlighted the importance of recognizing and addressing domestic violence, especially within the Hispanic community where discussions about such topics may be considered taboo or embarrassing. We are joined by Cami inforzato who is the Women's Program Coordinator for the Domestic Abuse Intervention Programs.  The discussion highlights the parallels between the private nature of breast cancer and domestic violence, both of which may not be immediately visible to others. It is essential to create a safe and supportive environment where survivors feel empowered to seek help and access resources for their safety.Topics Covered:00:07:02 - The Power and Control Wheel Explained00:10:25 - The Impact of Domestic Violence on Women and Children00:13:30 - Lourdes's Journey to Seeking Help00:18:49 - The Importance of Women Supporting Each Other00:19:33 - The Equality Wheel: Signs of a Healthy Relationship00:21:37 - Lourdes Reflects on Her Growth and EmpowermentResources:Hotline: 800.799. SAFE (7233). Power and Control Wheel: https://www.thehotline.org/identify-abuse/power-and-control/ Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Lauren shared her story, starting from the unsettling discovery of a lump during a routine yoga practice to her diagnosis of stage 3, triple-positive breast cancer at the young age of 29. She recounted the initial disbelief, the urgency of starting treatment, and the life-altering decisions she faced, including fertility preservation through IVF before commencing chemotherapy. 00:03:59 - Lauren's Breast Cancer Diagnosis Story00:08:48 - Family History and Genetic Testing00:11:12 - Sharing Diagnosis with Family and Friends00:14:21 - Treatment and Fertility Decisions00:19:48 - Journey to Motherhood00:25:08 - Children and Surrogacy Experience00:33:44 - Starting Liv and Let and the Giv ShoppeResources mentioned in this episode: https://www.livandlet.com/https://www.givshoppe.com/Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Tune in to this episode of Breast Cancer Conversations as Shannon and Erin share their personal experiences with the Signatara test. Shannon, living with oligometastatic breast cancer, takes a holistic approach to her treatment plan, while Erin, with early-stage triple-negative breast cancer, offers insights from a different perspective.Personalized blood tests for cancer, such as the Signatera are revolutionizing the way we monitor and treat cancer. These tests offer a non-invasive and more accurate way to detect circulating tumor cells in the bloodstream, allowing for early detection of cancer recurrence or progression.The Signatera test, developed by Natera, uses a combination of blood samples and tissue samples to create a specialized test that can detect circulating tumor cells that may not be detectable through traditional testing methods. By analyzing the levels of these circulating tumor cells in the bloodstream, the test can provide valuable information about the presence of residual cancer cells and the risk of recurrence or progression.Discover how Signatara is used to determine treatment plans and explore a variety of perspectives on managing breast cancer.[00:07:12] Holistic cancer treatment approaches.[00:14:06] Breast cancer treatment options.[00:18:13] Pathology complete response.[00:23:19] Circulating tumor cells detection.[00:25:52] Genetic makeup of cancer cells.[00:30:36] Exploring treatment options.[00:37:31] Moments of advocacy and empowerment.[00:44:33] Customizing Cancer Treatments.[00:49:17] Early cancer detection methods.[00:50:52] Misconceptions about cancer stages.+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Dawn shares her journey from diagnosis to traveling the world doing cat sitting after caring for her mother. Their conversation touches on major milestones, personal experiences, and the impact of travel on Dawn's life post-treatment. Tune in for an inspiring story of resilience and adventure.00:02:08 - Travel Stories Post-Diagnosis00:08:42 - Seeking a Second Opinion and Surgical Biopsy00:12:34 - Dawn's Experience with Aromatase Inhibitors00:19:02 - The Importance of Second Opinions and Patient Choice00:21:24 - Dawn's Radiation Experience and Naturopathic Protocols00:24:06 - The Importance of Self-Care and Lifestyle Adjustments00:31:49 - The Three Stages of Recovery: Survive, Transform, Soar00:34:41 - The Role of Self-Care in the Healing Process00:40:12 - Embracing Travel as a Form of Emotional Release+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/Laura and Will: https://www.instagram.com/laura_and_will/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In this episode, Emily Parks, a patient advocate and professional living with a chronic illness, shares her personal journey with medical PTSD, starting from her diagnosis at birth with a gene mutation affecting her GI system. She talks about the lack of mental health support in her medical treatment and how she learned to manage her condition and advocate for herself within the healthcare system.We touch on the importance of recognizing medical PTSD, understanding its triggers, and learning how to communicate effectively with healthcare providers to ensure better care and support. Emily emphasizes the power of language in expressing our experiences and the need for literature that accurately reflects the trauma associated with chronic illness and medical treatment.We cover practical tips for managing medical PTSD, such as setting boundaries with healthcare providers, seeking therapy, and finding coping mechanisms that work for you. We discuss the importance of building a respectful relationship with your medical team and how to advocate for your needs in a healthcare setting. Welcome to the Conversation! 00:03:57 - Emily Parks' Personal Medical Journey00:08:41 - Defining Medical PTSD00:10:10 - Examples of Medical PTSD00:14:28 - The Impact of Medical PTSD on Cancer Patients00:18:12 - The Term "Non-Compliance" in Medical Notes00:19:51 - Medical Gaslighting Explained00:29:27 - Building a Trusting Relationship with Healthcare Providers00:31:09 - The Importance of Language in Expressing Medical Trauma00:33:06 - Practical Steps for Accessing Care with Medical PTSD00:34:11 - Setting Boundaries with Healthcare Teams00:37:10 - Coping Mechanisms and Self-Advocacy00:44:55 - Resources and Articles on Medical PTSD00:47:38 - The Importance of Patient-Centered Care00:51:07 - The Power Dynamic Between Patients and Providers00:52:31 - Strategies for Communicating with Healthcare Providers+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/Laura: https://www.instagram.com/laura_and_will/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In this episode, we had the pleasure of introducing our incredible Metastatic Breast Cancer (MBC) Leadership Team. It was a heartwarming session where we delved into the personal journeys of our team members, each sharing their unique experiences with breast cancer.Our conversation was guided by the ever-inspiring Abigail Johnston, a board member and a dear friend, who led us through the stories of our amazing guests. We heard from Katie, Sheila, Claudia, Melanie, Amy, and in spirit, Kathleen, who couldn't join us due to the side effects of MBC. Each story was a testament to the strength and resilience of those living with a metastatic diagnosis.We discussed the importance of clinical trials, the power of education, and the need for community support. Our team also highlighted the resources and programs that Surviving Breast Cancer offers, including our webinar series, support groups, and the wealth of information available on our website.The episode was not just about sharing stories; it was about building a family. We emphasized the significance of intimacy in our conversations and creating a space where we can share the most personal aspects of our lives with openness and trust.Topics Covered: 00:03:33 - The Role of the MBC Leadership Team00:06:02 - Personal Stories: Katie's Journey with MBC00:09:08 - Sheila's Experience and Advocacy in the Hispanic Community00:12:25 - Claudia's Experience with Metastatic Triple Negative Breast Cancer00:17:01 - Melanie's Transition from Early Stage to Metastatic Disease00:23:05 - Amy's Diagnosis and Advocacy Work00:29:22 - Honoring Kathleen's Contributions and Initiatives00:32:01 - Abigail's Clinical Trial Experience and Advocacy00:44:38 - Overcoming Cultural Barriers in the Hispanic Community00:47:36 - The Significance of Education in Cancer Treatment++++++++++++++++++++Website:SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramSurvivingBreastCancerorg: https://www.instagram.com/survivingbreastcancerorg/Laura and Will: https://www.instagram.com/laura_and_will/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Today's episode of Breast Cancer Conversations features Rachel Burns, an incredible musician, singer, songwriter, and founder of the nonprofit Cancer Culture. Celebrating 10 years since her initial diagnosis, Rachel dives into her identity beyond cancer, highlighting her roles as a mom, daughter, and advocate. As a musician, Rachel describes the healing power of music and how it helped her process her emotions and experiences with cancer. Rachel's songs, which blend various genres, serve as a source of hope and inspiration for others facing similar challenges. Welcome to the ConversationRache's story is a powerful reminder that while cancer can change our lives, it doesn't have to define them. We can find strength in our passions, support in our communities, and hope in our continued efforts to live fulfilling lives.Topics Covered: 00:02:17 - Living with Breast Cancer Post-Diagnosis00:05:35 - Identity and Breast Cancer00:12:36 - Mental Health and Cancer Diagnosis00:16:02 - Lifestyle and Diet Before Cancer00:24:29 - Finding Flow State Through Music00:28:20 - The Healing Power of Art and Music00:33:59 - Involvement with Cancer Culture+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Today, we have the pleasure of speaking with Jacquie Carter Angell, a remarkable woman who has not only survived non-Hodgkin's lymphoma as a teenager but is now living with metastatic triple-negative breast cancer (MBC).Jacquie shares her incredible journey with us, from being told she wouldn't live past her early 20s to becoming a mother, a wife, and a successful entrepreneur in the beauty industry. Despite her initial diagnosis of HER2-positive breast cancer and later, the more challenging triple-negative metastatic disease, Jacquie's spirit remains unbroken.In our conversation, 's emphasized the importance of self-examination, noting that both times she discovered her breast cancer, it was through accidental self-discovery rather than routine mammograms. She highlighted the need for women, regardless of age, to be vigilant about their breast health.Jacquie also opens up about the difficult decision of whether to disclose her cancer diagnosis to colleagues at work. She reflected on her first experience with breast cancer, where she prioritized her career over her health, and contrasted it with her current approach, which puts her well-being first! Welcome to the Conversation. 00:02:05 - Jacquie's Personal Story and Cancer Experiences00:09:06 - Deciding Whether to Share Diagnosis at Work00:18:28 - Discovering the Recurrence of Cancer00:23:06 - Experience on Trodelvy00:24:01 - Understanding Triple Negative Breast Cancer00:29:19 - Finding Positivity and New Interests During Cancer00:31:28 - The Role of Caregivers and Family Support00:32:38 - Advice for Those Recently Diagnosed+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Today, we had the pleasure of having Melanie Sisk on the show to demystify the complex world of emerging endocrine therapies, often referred to as the "alphabet soup" of treatments. Melanie provided clarity on the different classes of drugs and how they interact with tumors, particularly focusing on those that target estrogen receptors.We discussed:SERMs (Selective Estrogen Receptor Modulators): These drugs, like tamoxifen, block the growth of cancer cells by competing with estrogen receptors.SERDs (Selective Estrogen Receptor Down Regulators/Degraders): Drugs like Fluvestrant work by degrading estrogen receptors.SERANs (Complete Estrogen Receptor Antagonists): These block both pathways of estrogen, offering a complete blockade.PROTACs: A newer class that targets specific proteins, such as the estrogen receptor, to inhibit cancer growth.+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Sanya has been conducting interviews with breast cancer patients and medical professionals to provide a comprehensive understanding of the treatment process. In this episode, Sanya interviews Gracita, a dedicated chemotherapy nurse who shares her own breast cancer journey and her passion for helping others. Gracita's story from the Bahamas to Haiti and eventually to the US serves as a testament to her commitment to making a difference. Tune in to hear her inspiring story and insights into the patient-medical team relationship.Gracita, a chemotherapy nurse and breast cancer survivor, shares her perspective on the significance of building a strong relationship between patients and their medical team. As a chemotherapy nurse, she empathizes deeply with her patients, rejoicing in their victories and sharing their sorrows. This level of personalized care and empathy is a testament to the dedication of healthcare professionals involved in the treatment process.The episode also highlights the different treatment modalities and recommendations for breast cancer, taking into account factors such as tumor size and characteristics (estrogen-positive, HER2-positive, or triple negative). This further underscores the need for tailored treatment plans that consider the specific characteristics of each individual's cancer.Furthermore, the episode emphasizes the importance of staying up-to-date with the latest guidelines and research when creating treatment plans. This reflects the continuous evolution and refinement of treatment plans based on the latest evidence and advancements in breast cancer treatment.[00:01:30] Gracita's breast cancer journey.[00:08:06] Cancer treatment journey.[00:09:30] Working with cancer patients.[00:17:23] Religion and family in cancer journey.[00:19:18] Importance of having support.[00:23:47] The mystery of cancer.+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Reefer MEDnessAs a nurse and pharmacist we focus our stories on people's use and perception of...Listen on: Apple Podcasts SpotifySupport the show

In this episode, we delve into the exciting developments in antibody drug conjugates (ADCs) presented at the 2023 San Antonio Breast Cancer Symposium.ADCs are a promising class of treatment that combines an antibody with a chemotherapy drug, aiming to target and kill cancer cells more effectively while reducing side effects. We discuss approved ADCs like Enhertu and Trodelvy, and highlight that there's an ADC available for every breast cancer subtype. With many more ADCs in clinical and preclinical trials, the future looks hopeful for breast cancer treatment.We explain the structure of ADCs, which includes the antibody that targets cancer cells, the cytotoxic drug that kills the cells, and the linker that holds them together. We also touch on the importance of choosing treatment types based on personal circumstances, such as age and family responsibilities, as different treatments come with varying side effects.During the episode, we cover two clinical trials in detail. The first is about Datopotamab Deruxtecan (DATO-DXD), which showed promising results in hormone receptor-positive, HER2-negative patients, offering increased progression-free survival and different side effect profiles compared to traditional chemotherapy. The second trial combined DATO-DXD with the immunotherapy drug Durvalumab for advanced and metastatic triple-negative breast cancer, showing a high response rate and manageable side effects.Our guest, Katie, shares her personal experiences with ADCs and provides insights into side effect management. She emphasizes the importance of dose adjustments and monitoring for specific side effects like nausea, vomiting, and interstitial lung disease. Katie also mentions the ongoing research to optimize dosing, detect side effects earlier, and engineer drugs with lower toxicity.As always, we remind our listeners that the information shared on our podcast is based on personal experiences and is not a substitute for professional medical advice. We encourage you to reach out to your medical care team with any questions or concerns.00:00:47 - Overview of Antibody Drug Conjugates (ADCs)00:03:37 - FDA-Approved ADC Examples00:04:49 - Datopotamab Deruxtecan (DATO-DXD) Clinical Trial Insights00:07:10 - Combining DATO-DXD with Immunotherapy00:08:23 - Managing ADC Side Effects00:09:53 - Specific Recommendations for Current ADCs00:11:09 - Future Directions in ADC Development+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

This podcast episode is part of our MBC webinar series with survivingbreastcancer.org, and focuses on resources for parents living with stage four metastatic breast cancer. The panel includes Carissa Hodgson from Bright Spot Network, Airn Ahlum Hanson from  Living Beyond Breast Cancer, Kelsey Mora from the Pickles Group, and Sara Olsher from Mighty and Bright. All of these organizations offer support and resources for parents and children affected by a cancer diagnosis. In this episode, we emphasize the impact of a cancer diagnosis on parenting and highlight the need for resources to help parents navigate this difficult situation.00:00:15 - Resources for parents with stage four metastatic breast cancer.00:11:58 - Books help children understand illness.00:17:05 - Support and resources for families.00:22:49 - Virtual programs build a greater community.00:29:04 - Parenting resources for families affected by cancer.00:40:01 - Importance of supporting clinicians and patients.00:47:15 - Plan A and Plan B.00:52:49 -  Navigating chronic metastatic disease together.00:57:39 - Children are more aware than we realize.Bright Spot Networkhttps://www.brightspotnetwork.org/Living Beyond Breast Cancer: https://www.lbbc.org/about-breast-cancer/family-relationships/parentingMighty and Brighthttps://mightyandbright.com/Pickles Grouphttps://www.picklesgroup.org/+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Welcome back to another episode of Breast Cancer Conversations, where we continue to share valuable insights from the San Antonio Breast Cancer Symposium. As a breast cancer survivor and the founder of survivingbreastcancer.org, I'm thrilled to bring you key takeaways from one of the world's largest breast cancer conferences.In this episode, we focus on what to do when CDK4-6 inhibitors, such as Ibrance, Kisqali, and Verzenio, stop working.  Our guest, Amy Bremer, highlights the importance of getting a biopsy to check for mutations, which can be done through a liquid biopsy or a tissue biopsy. This step is crucial for determining the next course of action.We delve into the various treatment options available based on specific mutations. For instance, if your cancer has a PIK3CA mutation, a combination of PIQRAY and Faslodex might be recommended. Other drugs like Trucap, Orserdo, and LSS strontosome are also discussed as potential options for different mutations.For those without mutations, there are still choices available, such as Affinitor plus Faslodex, or considering a switch to a different CDK4-6 inhibitor. We also discuss the possibility of continuing treatment beyond progression or, in cases of aggressive progression, looking into chemotherapy or antibody drug conjugates (ADCs).Stay tuned for our next episode, "on SERDs, SERMs, CERANs, and PROTACs" and remember to subscribe to Breast Cancer Conversations. Please note that our podcast shares personal experiences and is not a substitute for professional medical advice. If you have specific topics in mind or want to be a guest, feel free to reach out to me.Thank you for listening, and let's continue to empower each other through community, education, and resources.00:02:44 - Topic: CDK4-6 Inhibitor Efficacy00:03:31 - Options After Endocrine Therapy and CDK4-6 Inhibitors00:04:35 - Treatment Options Based on Specific Mutations00:05:40 - Options Without Identified Mutations00:06:43 - Inherited Mutations and Treatment Choices00:07:09 - Expert Opinions on Treatment Complexity00:08:44 - Importance of Clinical Trials+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In today's episode, part of our MBC webinar series, we delve into the San Antonio Breast Cancer Symposium (SABCS). We aim to break down the overwhelming amount of information into digestible insights. We discuss key findings, particularly on inflammatory breast cancer (IBC) and invasive lobular carcinoma (ILC), with insights from Amy Parliman, a member of our MBC leadership team.Amy highlights the advancements in technology that outpace current treatment options and the importance of recognizing the unique challenges of diagnosing IBC and ILC due to their imaging difficulties. She shares that the symposium acknowledged these challenges and that there's growing research focusing on the genomic mutations specific to these types of breast cancer.We also touch on the significance of patient-centric care, reminding listeners that they have the ultimate say in their treatment decisions. Amy shares her personal experience with her treatment regimen and the importance of sticking with what works unless there's a compelling reason to change.The episode also covers the potential of contrasted mammograms and the need for different types of PET-CT scans for accurate diagnosis. We stress the importance of being informed and advocating for oneself, as treatments can vary based on individual cancer properties.As always, we remind our listeners that the information shared is from personal experiences and not a substitute for professional medical advice. We encourage reaching out to your medical care team with any questions or concerns.00:02:46 - Dr. Mankoff's Research on Imaging Technology00:04:02 - Genomic Mutations in Different Breast Cancer Types00:04:34 - Clinical Trials and Research Timelines00:04:56 - Genes Implicated in Inflammatory Breast Cancer00:06:02 - Imaging Challenges with Lobular Breast Cancer00:07:07 - Amino Acid Studies and PET-CT Imaging00:09:19 - Personalized Treatment and Informed QuestionsAttend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsSurvivingBreastCancer.org's  Mission: To empower those diagnosed with breast cancer and their families from day one and beyond. Follow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In today's episode, part of our MBC webinar series, we delve into the San Antonio Breast Cancer Symposium (SABCS). We aim to break down the overwhelming amount of information into digestible insights.  Over the next week, we will be releasing short snippets and key take-aways from SABCS.  If you are thinking about attending this conference, today's patient advocate panelists share tips and tricks for making the most of your SABCS experience!  +++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/eventsFollow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

In today's episode of Breast Cancer Conversations, we dive deep into oral health! Before undergoing cancer treatment, it is crucial for individuals to prioritize their dental health. This is because cancer treatments, such as chemotherapy, can have significant effects on oral health, specifically how bisphosphonates may lead to Osteonecrosis of the Jaw (ONJ). In this podcast episode, we discuss the importance of visiting a dentist and dental hygienist before starting cancer treatment to achieve optimal oral hygiene. Topics Covered in this Episode: Bisphosphonates and dental health.Dental health considerations before cancer treatment.Oral health during cancer treatment.Understanding dental and medical coverage.Bisphosphonate-induced osteonecrosis of the jaw.Dental complications with bisphosphonates.Osteonecrosis symptoms and diagnosis.Nerve treatment during surgery.+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/events+++++++++++++++++++++SurvivingBreastCancer.org's  Mission: To empower those diagnosed with breast cancer and their families from day one and beyond. About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.+++++++++++++++++++++Follow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Support the show

Creating hope through tragedy is a powerful concept that is exemplified throughout this podcast episode. The conversation we have with Jan Hillman and Elesha Snyder shed light on the devastating effects of breast cancer and how it can inspire individuals to take action and make a difference.  Jan shares her journey of being diagnosed with breast cancer multiple times, including a recent diagnosis of metastatic breast cancer. Elesha shares the story of her sister Kelli who unfortunately passed away from metastatic disease.  Elesha's desire to make a difference and help others going through similar experiences is commendable. By creating the Breast Wishes Foundation, she is not only honoring her sister's memory but also providing support and resources to individuals and families affected by breast cancer. Welcome to the conversationTopics Covered in this Episode:00:04:03 - Jan's Personal Experience with Breast Cancer00:09:03 - Elesha's Experience with Her Sister's Breast Cancer and the Inspiration for Breast Wishes Foundation00:12:26 - Mission and Vision of Breast Wishes Foundation00:22:57 - Importance of Bringing Joy and Granting Wishes00:26:44 - Focus on Committees and Spreading the Workload00:27:42 - Importance of Strategic Planning and Accomplishments00:36:02 - Discussion on Sustainable Expansion and Self-Care00:40:03 - Additional Resources and Topics to Explore+++++++++++++++++++++About Breast Wishes Foundation: https://www.breastwishesfoundation.org/+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/events+++++++++++++++++++++SurvivingBreastCancer.org's  Mission: To empower those diagnosed with breast cancer and their families from day one and beyond. About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.+++++++++++++++++++++Follow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Support the show

Welcome to Breast Cancer Conversations, the podcast dedicated to empowering those affected by breast cancer. I'm your host, Laura Carfang, a breast cancer survivor and the founder of survivingbreastcancer.org. In this episode, we're diving into a topic that resonates with many in our community: the role of exercise, specifically Pilates, in regaining normalcy after a breast cancer diagnosis.Our guests today are Nina Prol, Bev Breen, and Marie McGuire, who share their insights and personal journeys with Pilates. Nina, a registered nurse with 30 years of experience in adult medical oncology, is also a passionate Pilates instructor. She shares how Pilates, originally developed by Joseph Pilates, is a low-impact exercise that enhances spine flexibility, posture, and core strength, making it ideal for cancer patients.Bev, an executive assistant and breast cancer survivor, recounts her experience with Pilates during her radiation treatment. Despite the challenges of treatment, Pilates provided her with a much-needed mental and physical break. Marie, another member of our community, emphasizes the importance of movement in managing lymphedema and maintaining overall well-being.Throughout the conversation, we discuss the benefits of Pilates for those undergoing cancer treatment, including improved sleep, reduced anxiety, and increased strength. We also touch on the importance of breathwork and mindfulness as tools for stress reduction.As a reminder, while exercise can be a powerful tool in recovery, it's crucial to listen to your healthcare provider's advice and communicate any side effects or concerns. We hope this episode inspires you to explore Pilates or other forms of exercise as part of your recovery journey. Topics Covered: 00:00:03 - Introduction to Breast Cancer Conversations Podcast00:02:12 - Discussing Exercise Post-Cancer Diagnosis00:04:09 - Nina's Introduction and Pilates Journey00:06:12 - Bev's Experience with Breast Cancer and Pilates00:09:42 - Marie's Breast Cancer Story and Pilates Experience00:14:18 - The Benefits of Pilates and Its Accessibility00:24:59 - Discovering Pilates Post-Diagnosis00:30:18 - The Mental Health Benefits of Pilates00:33:09 - Importance of Communication with Healthcare Providers00:35:38 - NCCN Guidelines and Empowering Patients00:37:44 - Questions to Ask Your Doctor+++++++++++++++++++++Attend a free virtual SurvivingBreastCancer.org event:https://www.survivingbreastcancer.org/events+++++++++++++++++++++SurvivingBreastCancer.org's  Mission: To empower those diagnosed with breast cancer and their families from day one and beyond. About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.+++++++++++++++++++++Follow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Support the show

In this episode, we emphasize the significance of being mindful about the conversations we have, the friendships we cultivate, and the music we listen to, as they can either nourish or deplete us.  Just as the food we consume can impact our physical well-being, the conversations we engage in can have a similar effect on our overall health.Investing time in nourishing conversations can be life-giving rather than promoting negativity. By dissolving fear and choosing where to focus our attention, we can engage in conversations that bring vitality and contribute to our overall well-being. Be mindful of our environment and relationships, as they can either invigorate us or drain our vital energy.  Let's not waste mental energy on things that do not nourish us. Our thoughts, feelings, and emotions have the power to shape our physical bodies and greatly influence our experiences.Quotes: "Once we live a conscious life, this moment of death can be enlightenment.""Holding space,  is  witnessing someone and the light that comes out of them without trying to fix.""Sometimes the opportunity to stop, pause, is the beginning of your healing."Topics Covered In This Episode:End-of-life issues.Home funerals and green burials.Embracing the fact that death is coming.Where do we go when we dream?Grief rituals and healing.Different approaches to death.The process of dying.Advanced Directives and Resources.Legacy planning and digital assets.Living life before we're dead.Declining health and caregiver transitions.Subtle bodies and energy healing.The gift of each moment.Get to know our guest speaker Gabi Dias:Insta: @goatgabi, @TheDeathTalkWebsite: www.goatgabi.comImportant Links:The 5 Wishes Document https://www.fivewishes.org/for-myself/POLST: https://polst.org/+++++++++++++++++++++SurvivingBreastCancer.org's  Mission: To empower those diagnosed with breast cancer and their families from day one and beyond. About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.+++++++++++++++++++++Follow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/Support the show

This podcast episode features a conversation about breast cancer, advocacy, and medical PTSD. Host Laura Carfing introduces two guest authors, Brenda Denzler and Elaine  Schattner, who share their experiences with breast cancer and discuss their books and writing. The episode also highlights the importance of finding purpose and meaning after a breast cancer diagnosis.Topics In this Episode:00:03:28 Finding purpose after breast cancer.00:08:35 Mental health and breast cancer.00:14:24 Importance of cancer awareness and perception.00:25:44 Importance of patient advocacy.00:39:21. Medical PTSD is real.00:41:54 Importance of compassion in healthcare.00:47:14 Early medical experiences can traumatize.00:53:49 Consider self-publishing or hiring a ghostwriter.00:57:39 Consider partnering with a ghostwriter.About the Panelists:Brenda is a writer and editor currently living in rural North Carolina. She is the author of numerous articles about cancer-related topics and treatment-related medical PTSD, including For My Own Good: Medical PTSD and Me as well as the founder and co-moderator of a support group for PTSD on Facebook.When she is not writing--and has the energy--she tackles the upkeep on her property, and tries to get in some exercise (because after all, exercise is "the answer" for just about everything that ails ya', right?), enjoys being with her grandkids, and grabs most of her opportunities to spend time with friends. In her downtime, she is currently hooked on digital jigsaw puzzles as a suitable low-brain-demand activity. She is a doggie mom to two large and energetic puppies--which as she knows now is never (in her opinion) a good idea for older people! And she is owned by a geriatric cat, which is definitely more her speed.Elaine Schattner is a physician, breast cancer survivor, and former oncologist whose book, From Whispers to Shouts: The Ways We Talk About Cancer, is published by Columbia University Press and was recently released as an audiobook. Her work explores public attitudes toward cancer through the history of cancer awareness campaigns, patient advocacy, and news including social media.Dr. Schattner is a Clinical Associate Professor of Medicine at Weill Medical College. After her cancer diagnosis, she earned a master's degree in journalism from Columbia University. Her freelance work has appeared in Aeon magazine, The Atlantic, NPR, Scientific American, the Washington Post, and elsewhere. She is a member of the American Society of Journalists and Authors and the Association of Health Care Journalists.+++++++++++++++++++++SurvivingBreastCancer.org's  Mission: To empower those diagnosed with breast cancer and their families from day one and beyond. About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.+++++++++++++++++++++Follow us on InstagramLaura and Will: Support the show

In this podcast episode, Laura Carfing interviews Shelly Rosenfeld, the director of the Cancer Legal Resource Center. The center offers free legal resources to people impacted by cancer, including patients, caregivers, and healthcare professionals. They provide confidential information and research on various legal topics related to cancer. Today's podcast episode delves into ADA policies, insurance coverage, and patient rights. The aim is to educate individuals about their rights and empower them to seek the resources they need during their cancer journey.Topics in this Episode: 00:00:31 Legal resources for cancer patients.00:10:23 Consider discussing accommodations with the employer.00:15:50 Know your rights, seek support.00:22:27 Accommodations are important for recovery.00:24:09 Importance of communication and advocacy.00:29:05 Financial resources for cancer treatment.00:37:42 Advocate for yourself, ask questions.00:38:04 Financial toxicity and advocacy.00:42:41 Keep thriving.+++++++++++++++++++++Important Links: https://thedrlc.org/cancer/https://www.survivingbreastcancer.org/https://www.survivingbreastcancer.org/events+++++++++++++++++++++Follow us on InstagramLaura and Will: https://www.instagram.com/laura_and_will/SurvivingBreastCancer.org: https://www.instagram.com/survivingbreastcancerorg/+++++++++++++++++++++SBC's Mission: To empower those diagnosed with breast cancer and their families from day one and beyond. About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.Support the show

Topics discussed in this Episode:00:02:18 Parenting with MBC: Challenges and Gratitude.00:06:26 Reframing difficulties with gratitude and presence.00:14:31 Embrace diversity and self-acceptance.00:21:13 Educating others about personal challenges.00:25:03 Open communication is important.00:33:10 Open and honest communication about cancer.00:39:09 Adapt parenting to accommodate limitations.00:43:05 Importance of connection in parenting.00:59:01 Legacy planning for children01:01:07 Support and resources for parentingAbout our Guest: Dr. Stavey Devin:Stacey Devine, MD, has been a board-certified family physician since 2000. While sheloved seeing people and treating diverse conditions, she became tired of surface-leveldisease management. She longed to spend more time with her patients and go deeperinto the root cause of their illnesses.  She also wanted to focus on disease prevention and holistic health and wellness. This led Dr. Devine to pursue fellowship training at the University of Arizona Andrew Weil Center for Integrative Medicine and board certification in Lifestyle Medicine. She has a solo practice in Davidson, NC, and helps people reverse and prevent chronic disease with lifestyle management and more natural treatment options. She has worked with many breast cancer survivors in her private practice and understands the impact of their treatments on their physical and emotional health. Integrative oncology and lifestyle medicine have a tremendous impact on their quality of llife and she believes should be a standard part of survivorship care. She created an online course, Thriving After Breast Cancer®, to help breast cancer survivors heal from their treatments, reduce their risk of recurrence, and empower them to thrive.Support the show