Podcasts about care partners

Instead of a long goodbye, imagine a nine-year journey filled with newfound creativity, laughter, and deep connection. In this episode of Real Things Living, Brigitte Cutshall talks with Marilyn Raichle, author of "Don't Walk Away: A Care Partner's Journey." Marilyn shares how her mother's late-life discovery of painting transformed their relationship from one of "caregiver and patient" to true "care partners".KEY DISCUSSION POINTS(1) Art as an Anchor: Marilyn discovered that while Alzheimer's is scary, art is not; it allows the person living with dementia to be present and their true self to emerge.(2) The Power of Listening: Marilyn shifted from "being raised to win" to learning the art of listening, discovering that her mother always had something left to teach.(3) Living vs. Suffering: A central theme of the conversation is the importance of saying a person is "living with" dementia rather than "suffering from" it, acknowledging their ongoing value and humanity.(4) Innovation in Care: As Executive Director of the Maudes Awards, Marilyn highlights how they provide $100,000 in annual gifts to individuals and organizations finding innovative ways to bring joy to those with memory loss.Insights for Care Partners:(1) The Five-Minute Rule: If you are struggling to connect, find one simple thing you both enjoy—a walk, a song, or a sunset—and do it for just five minutes.(2) Emotional Memory: Even if a loved one cannot remember the specifics of a visit, they retain the positive emotion and "joy" that the interaction provided.ResourcesWebsite: https://dontwalkaway.net The Maude's Awards: https://maudesawards.org

Send a textOne of the most overlooked referral partners in home care marketing might surprise you.Elder law attorneys.These professionals talk to families when they are dealing with some of the hardest decisions:Mom fell. Dad can't live alone anymore. The hospital is talking about discharge. The family is worried about Medicaid or losing the house.And often the adult children have no idea where to start.In a recent conversation with elder law attorney Bill Nolan, we talked about how attorneys choose which home care agencies they recommend.A few things stood out.The agencies that earn referrals are the ones that:✔ Answer their phone ✔ Communicate clearly with families ✔ Screen and supervise their caregivers ✔ Handle problems honestly and quickly ✔ Show professionalism during stressful family momentsOne thing he said really stuck with me.No agency is perfect. Things happen. But how the agency responds makes all the difference.We also talked about something families rarely realize.Sometimes families think they can't afford home care.But legal planning can open doors like:• VA Aid and Attendance benefits • Medicaid planning strategies • Special needs trusts • Financial planning that keeps someone at home longerWhen home care agencies and elder law attorneys work together early, families often have more choices and less stress.And that's the goal.Helping families stay home safely while protecting their future.Continuum Mastery Circle IntroVisit our website at https://asnhomecaremarketing.comGet Your 11 Free Home Care Marketing Guides: https://bit.ly/homecarerev

This episode is hosted by Tony Schueth, CEO of Point-of-Care Partners, alongside co-host Pooja Babbrah, a pharmacy standards and interoperability expert, who welcome special guest Bob Katter, President of First Databank (FDB). Together, they explore how technology is enabling pharmacists to expand their clinical services, enhance patient care, and integrate more deeply into the healthcare team—especially in rural areas. Bob Katter shares his insights on the journey of health IT and pharmacy, from the rise of electronic prescribing to the challenges and opportunities that lie ahead. Plus, don't miss the discussion on pharmacists' pivotal role during the COVID-19 pandemic, including vaccine administration and the impact of legislative changes on their practice. Tune in for a compelling conversation on how pharmacists are stepping up to meet the evolving needs of healthcare. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen

Dementia is one of the greatest fears associated with aging—but what if it didn't have to mean loss, disappearance, or despair? In this deeply moving episode, author and arts innovator Marilyn Raichle shares how walking toward her mother, rather than away, transformed dementia into a journey of presence, creativity, connection, and joy. This conversation offers a profoundly human reframe of memory loss and aging. For many people, dementia is equated with the loss of self, meaning, and value. Families are often advised—explicitly or implicitly—to disengage emotionally, preparing for inevitable decline and disappearance. But how we approach dementia shapes not only quality of life for those living with it, but also the emotional, psychological, and biological stress experienced by care partners. Chronic fear, grief, and disengagement accelerate aging for everyone involved, while presence, joy, and connection support resilience and healthspan.  Author of  Don't Walk Away, A Care Partner's Journey, Marilyn Raichle brings a rare perspective shaped by a lifetime in the performing arts and nine years as a care partner to her mother, Jean. Through art, shared joy, and daily presence, Marilyn discovered that her mother was not "gone," but distilled to her essential humanity—creative, competitive, loving, and alive. Listeners will learn how creativity opens pathways to connection, why joy is possible even in advanced dementia, and how reframing the experience from caregiving to partnership transforms both lives.  Episode Timelines: 00:00 — Dementia and our deepest fears about aging  03:45 — Marilyn's background in the performing arts  07:30 — Becoming a reluctant care partner  10:45 — Discovering creativity through painting  14:30 — The Art of Alzheimer's is born  18:40 — Enduring personhood explained  22:55 — Sharing joy as a daily practice  27:30 — A single mindset shift for care partners  31:00 — Final reflections on love, presence, and meaning  Connect with Marilyn Raichle dontwalkaway.net/ https://www.facebook.com/marilyn.raichle     https://www.linkedin.com/in/marilynraichle/   instagram.com/raichlem/  Connect with Dr. Gillian Lockitch Download your Guide to Nature's Colouful Antioxidants for Eye, Heart, Brain and Skin Wellness  and  Download your Checklist to Mind and Memory Boosting Strategies  Connect with Dr. Gillian Lockitch at askdrgill@gmail.com  to request a phone conversation or zoom call   Join the Growing Older Living Younger Facebook Community here   Share the Growing Older Living Younger podcast link for anyone you care about and invite them to subscribe  

On this episode of the Glossy Beauty Podcast, Pop editor Sara Spruch-Feiner is joined by Catherine D'Aragon, CEO of First Aid Beauty, to discuss the brand's recent rebrand — its first in its near-20-year lifespan — and its decision to partner with Team USA ahead of the Winter Olympics. The conversation comes at a time when beauty brands are increasingly showing up at the Olympics — from athlete partnerships and product seeding (First Aid gifted all Team USA members) to behind-the-scenes content and performance-focused skin care. Brands including Fenty Beauty, L'Oréal Paris and Glossier have previously activated around the Olympics, as has First Aid Beauty's parent company, Procter & Gamble. Procter & Gamble also owns Gillette Venus, which is sponsoring U.S. Figure Skating athletes Alysa Liu,  Isabeau Levito, and Starr Andrews. The discussion also explores why beauty brands are increasingly turning to athletes, how First Aid Beauty is positioning itself around simplicity and skin "support" in a crowded skin-care market, and how the brand plans to translate a global sporting moment into long-term relevance.

What if the biggest problem in healthcare isn't diagnosis — it's capacity? On this episode of Building One, Tomer Cohen sits down with Dr. Thomas Kelly, co-founder and CEO of Heidi, to unpack what it actually takes to build AI for one of the most complex, regulated, and human industries in the world. Before starting Heidi, Tom was a vascular surgeon. He saw firsthand how some of the most highly trained people on the planet were spending their days on low-value administrative work. Heidi began by listening to real patient visits and drafting clinical notes. Today, it's expanding into the vast — and invisible — work around care: follow-ups, calls, scheduling, and coordination. In this conversation, we explore: What “doubling capacity” in healthcare really means Why personalization must be nearly perfect — measured almost like a clinical SLA What it takes to build AI that doctors actually trust How GPT-4 didn't kill Heidi's moat — it forced a radical pivot And how Heidi rewrote the healthcare go-to-market playbook by winning clinicians one by one Everyone talks about AI's potential. This episode is about delivering it — in the real world, where trust is fragile, stakes are high, and a 5% edit can break the magic.

In this inspiring episode of the Positive Aging Community podcast, co-hosts Steve Gurney and Margaret Foster, editor of The Beacon Newspapers, sit down with author Marilyn Raichle to discuss her book "Don't Walk Away: A Care Partner's Journey". They dive into Marilyn's heartfelt story of transforming from a reluctant caregiver to a joyful care partner for her mother, Jean, who lived with dementia until age 96.Key Highlights:The Journey Begins (0:00-5:00): Marilyn shares her Seattle roots and her mother's stark advice: "When we get Alzheimer's, walk away." But after her father's passing, a moment of humor sparked a deeper connection, shifting Marilyn from "caregiver" to "care partner"—focusing on building a shared, fulfilling life rather than just providing help.The Power of Art and Community (5:00-15:00): Discover how a simple painting class at Jean's continuing care facility unlocked astonishing creativity. Marilyn founded "The Art of Alzheimer's" to showcase her mom's vibrant works, challenging stereotypes: "Alzheimer's is scary, art isn't." She integrated into the community, gaining "six new moms" and finding relaxation and joy in visits filled with laughter and Scrabble games.Lessons in Humanity and Growth (15:00-25:00): Marilyn offers wisdom for caregivers: Start with 5 minutes of shared joy, listen without needing to "win," and recognize that people with dementia are still fully human—needing purpose, friends, and love. Her experience made her a "happier person," teaching emotional openness despite her Scottish Calvinist upbringing.Looking Ahead (25:00-End): Marilyn now works with Maude's Awards, granting $100,000 annually for Alzheimer's innovations (applications open March 13th—organizations, individuals, for-profits, or nonprofits welcome!). She hopes her book shifts societal views, showing dementia as a life worth living.This episode flips the script on caregiving burdens, emphasizing hope, humor, and humanity. As Marilyn says, "If they're 'gone,' who's there? It's somebody well worth getting to know."Get Involved:Buy the Book: Grab Don't Walk Away on Amazon or visit the official site. https://dontwalkaway.net/Maude's Awards: Learn more and apply at maudesawards.org.#PositiveAging #CaregivingJourney #DementiaCare

Families supporting individuals living with dementia can face challenges such as sleepless nights, isolation, and not being prepared with a backup plan for care. In this candid conversation, Teepa Snow explains why waiting for a crisis makes everything harder—and how early, family-wide support can protect relationships, reduce burnout, and prevent care partners from feeling like they're carrying everything alone. Waiting until a crisis makes everything harder — especially for care partners already stretched thin. Challenging Behaviors: Using a Positive Approach® helps families recognize unmet needs behind distress, respond earlier, and prevent situations from escalating.

From miraculous brain supplements to artificial intelligence-generated health claims, today's online world is full of noise—and care partners are often left trying to sort fact from fiction. In this episode, Teepa Snow and Greg Phelps unpack why misleading dementia headlines spread so quickly, how manipulative ads masquerade as science, and what red flags to look for before clicking add to cart. Teepa also explains why personalized guidance matters far more than the latest trending cure, and how PAC™ offers real human support when you're unsure what (or whom) to trust.This episode exposes miraculous cures and misinformation, reinforcing that solid skills and personalized support outweigh sensational promises. To continue this theme, check out PAC Skills Make the Difference (DVD). In just under an hour, Teepa demonstrates how practical care techniques – like Positive Physical Approach™ and Hand-under-Hand® – truly improve life for people living with dementia. You'll see the difference that compassionate, informed support makes, confirming that investing in real skills and human connection matters far more than any trending supplement or clickbait headline. It's a perfect follow-up for care partners who want to replace hype with heartfelt, evidence-based strategies.

Although ambient voice transcriptions driven by AI are seeing widespread adoption in healthcare institutions, only 20%-40% of clinicians adopt it in each institution, according to Dr. Thomas Kelly, CEO & Co-Founder at Heidi. However, when Heidi's AI medical scribe is brought in, they achieve an average 60-70% adoption by clinicians.This is because they focus directly on how to help clinicians do their jobs, according to Kelly, although they don't ignore the larger issues such as compliance and integration with EHRs. By maintaining independence from the EHR, and by offering many different templates for each specialty, Heidi allows more customization.Learn more about Heidi: https://www.heidihealth.com/Healthcare IT Community: https://www.healthcareittoday.com/

In recognition of National Caregivers Month, this episode explores the vital role of those who support individuals living with vision loss—whether family members, professionals, or volunteers. Our guests will discuss the emotional, physical, and financial challenges care partners face and share practical resources to help support them.

In this episode, Rev. Oliver Helsabeck talks with Dr. Edward Shaw, a physician, mental health counselor, and dementia care specialist about the challenges of dementia, Alzheimer's disease, and caregiving that impact many families. Dr. Shaw founded the Memory Counseling Program that serves people impacted by dementia and Alzheimer's disease as part of the Sticht Center at Atrium Health Wake Forest Baptist in Winston-Salem. Dr. Shaw will present a program on dementia and the aging brain on Sunday, October 19 at 5:00 p.m. in Memorial Auditorium. The program, “Anchored in Love: Understanding the Aging Brain and Dementia; Supporting Parents, Family, and Loved Ones as Care Partners,” is open to the public and sponsored by Centenary's Stephen Ministry and Shining Light on Mental Health Ministry.

Send us a textSusan SternSpring to Life CoachingInstagramFacebookSupport the Alzheimer's & Dementia Resource Center

Bridging Home, Family, and Health Plans: Avanlee Christine on Caregiver-First Health Innovation StartUp Health community member Avanlee Christine, CEO & Co-founder of Avanlee Care, joins Unity Stoakes on StartUp Health NOW to share how a pivot from fundraising to customer development unlocked product traction, investor interest, and partnerships with innovative health plans. From Billings, Montana, Avanlee explains why integrating unpaid family caregivers into care workflows improves outcomes, raises satisfaction, and helps Medicare Advantage plans do more with less. In this episode: How shifting focus from pitching to building sparked inbound VC interest, including the first venture investor Why 60% of Medicare Advantage members rely on informal caregivers, and how formalizing that communication closes gaps Practical ways caregiver engagement boosts stars, adherence, annual wellness visits, and CAHPS Lessons from scaling a health tech company in Montana, with support from mentors and investors like Esther Dyson Real talk on resilience, motherhood, team building, and staying alive through tough cycles What health plan leaders, quality and risk teams, and investor partners should know about Avanlee Care right now Listen for: Simple, structured steps health plans can take to bring caregivers into the loop A founder's playbook for surviving early years, finding product-market fit, and creating momentum outside traditional tech hubs     Are you ready to tell YOUR story? Members of our Health Moonshot Communities are leading startups with breakthrough technology-driven solutions for the world's biggest health challenges. Exposure in StartUp Health Media to our global audience of investors and partners – including our podcast, newsletters, magazine, and YouTube channel – is a benefit of our Health Moonshot PRO Membership. To schedule a call and see if you qualify to join and increase brand awareness through our multi-media storytelling efforts, submit our three-minute application. If you're mission-driven, collaborative, and ready to contribute as much as you gain, you might be the perfect fit. » Learn more and apply today. Want more content like this? Sign up for StartUp Health Insider™ to get funding insights, news, and special updates delivered to your inbox.

Being a care partner transforms lives in profound ways. This episode shares the deeply personal journey of Janice Goldberg, a dedicated caregiver for her wife, Sue. You'll hear about the daily realities of living with Alzheimer's. Discover the challenges of elopement and the constant need for vigilance. Janice highlights the emotional and physical toll caregiving takes. She emphasizes the lack of clear answers in this complex disease. This conversation also explores their participation in "A Matter of Mind - My Alzheimer's." The film offers a raw and vital look at their lives. Janice discusses how the movie shines a light on caregiving. She shares how she and Sue have become partners in facing this journey. Learn about the critical need for support and resources. This episode underscores the importance of acknowledging caregivers. They are true partners in a demanding role. Ultimately, it reveals how love and resilience guide every partnership through Alzheimer's. Our Guest: Janice Goldberg Based in New York, Janice Goldberg is the recipient of the Kennedy Center Gold Medallion Award for her work with new plays. She has directed over 80 new works, uptown and down, across the country, from university to Off-Broadway. +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Related episodes: Manage Caregiver Grief - When They Don't Remember a Death Alzheimer's - Insights from "A Matter of Mind" [Carlos Olivas] +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Sign Up for more Advice & Wisdom - email newsletter. Please help us keep our show going by supporting our sponsors. Thank you. ++++++++++++++++++++++++++++++++++++++++ Make Your Brain Span Match Your LifeSpan Relevate from NeuroReserve With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. ++++++++++++++++++++++++++++++++++++++++ Feeling overwhelmed? HelpTexts can be your pocket therapist. Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice. Sign up for a year of support and get: Daily or twice-weekly texts tailored to your situation Actionable strategies to cope and move forward Support for those who care about you (optional) HelpTexts makes getting help easy and convenient. ++++++++++++++++++++++++++++++++++++++++ List of the Top 20 Alzheimer's Podcasts via FeedSpot! See where we rank. Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram LinkedIn  Facebook Contact Jen at hello@fadingmemoriespodcast.com Or learn more at Our Website

BrainStorm wants to hear from you! Send us a text.In this deeply moving episode of BrainStorm by UsAgainstAlzheimer's, Emma Heming Willis shares her intimate journey as a caregiver to her husband Bruce Willis, who lives with frontotemporal dementia. Their conversation covers the progression from early warning signs to diagnosis and the complex decisions required in caregiving - including the heartbreaking but necessary choice to have Bruce live separately to better serve both his needs and their children's wellbeing.Emma's candid discussion about reframing expectations, finding permission to ask for help, and discovering unexpected beauty amid profound loss offers hope and practical guidance for other caregivers. Her transformation of personal tragedy into advocacy through her book "The Unexpected Journey"  demonstrates how caregivers can find purpose and meaning while navigating one of life's most challenging experiences. You don't want to miss this episode!Produced by Susan Quirk and Amber RonigerSupport the show

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter In this episode of the Parkinson's Podcast Unfiltered, hosts Heather, Kat, and Chris tackle one of the toughest questions of this season of Unfiltered: how to manage apathy and depression in advanced Parkinson's while also navigating a healthcare desert. This episode also includes discussion of strategies for sleep, including how to turn over and get comfortable when you feel "velcroed to the bed," as well as some ideas about exercise options for people with limited mobility, from chair yoga to simple seated movements that anyone can do. Finally, your Unfiltered hosts explore creative outlets like the Haiku for Parkinson's program and other artistic practices that can provide new opportunities for emotional expression and therapeutic benefits for people living with Parkinson's. Have a question or comment for the hosts of the Parkinson's Podcast: Unfiltered? Send it here. https://dpf.org/unfiltered Interested in our Living with Parkinson's, Care Partner, or Live Well Today webinars? Learn how to join. https://dpf.org/webinars To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

Join us for an uplifting exploration of the life-changing impact of "Day Respite Care Centers" and the remarkable work of Veranda Ministries. You'll gain insight into the legal aspects of our program and get an exclusive update on the exciting changes on the horizon. We're eager to share our vision with you and invite your feedback on how just four hours can profoundly transform the lives of Tennessee's aging population and their families/care partners. Your opinions will be instrumental in shaping our mission to support those living with dementia and the aging population. We welcome perspectives from all states, as many programs offer similar "day respite" services. Please share your thoughts with us at mailto:mao1024@gmail.com. Your input will be invaluable in helping us drive positive change.  www.verandaministries.org

Good Vibe Tribe - Autism Care Partners full 283 Thu, 21 Aug 2025 13:17:26 +0000 YLD30I0jgjCKy3kinZN4kD14ndv9In9M latest,wwbx,society & culture Karson & Kennedy latest,wwbx,society & culture Good Vibe Tribe - Autism Care Partners Karson & Kennedy are honest and open about the most intimate details of their personal lives. The show is fast paced and will have you laughing until it hurts one minute and then wiping tears away from your eyes the next. Some of K&K’s most popular features are Can’t Beat Kennedy, What Did Barrett Say, and The Dirty on the 30! 2024 © 2021 Audacy, Inc. Society & Culture False https://player.amperwavepodcasting.com?feed-link=https

BrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm by UsAgainstAlzheimer's, host Meryl Comer explores the critical issue of agitation in dementia care with Dr. Carolyn Clevenger, Founder and Director of Emory's Integrated Memory Care Clinic. Dr. Clevenger provides practical advice for caregivers, emphasizing that documentation of behaviors and triggers is crucial, and that caregivers must learn to adapt.  Her innovative approach to dementia care through integrated memory care which provides primary care, dementia specialist services, and family caregiver support all in one practice. This is a must listen for all caregivers! This episode of BrainStorm is sponsored by Lundbeck US. Support the show

Learn more about the Sequoia Project's CMS0057F Implementation checklist here- https://sequoiaproject.org/interoperability-matters/payer-to-payer-api-workgroup/  Michael welcomes back (Episode 174, Oct 2024) the co-chairs of the Sequoia Project's Payer to Payer API Implementation Workgroup, Nancy Beavin (Medica) and Bob Oakley (Evernorth), to discuss their new work product, a downloadable tool designed to help payers assess their readiness for compliance with the payer-to-payer components of CMS-0057-F. Along with the workgroup's project manager, Jim Adamson (Point of Care Partners), Nancy and Bob offer updates on the workgroup meetings, the origin of the checklist, and their plans for the future.   

Gardening is more than just a physical activity; it's also deeply emotional to those who pursue it across a lifetime. It's part of a person's identity, grounding, and place in the world. As physical challenges ensue through the years, it's important to know how to adapt gardening activities and tools along the way. Gardeners and their care partners can plan ahead to ensure this meaningful part of life continues despite the many challenges. In this episode host Karen Summey, ACAPcommunity is joined by John Bowen, Retired Master Gardener, NCSU Cooperative Extension Volunteer. John is a retired science teacher and an active Master Gardener in Buncombe County in western North Carolina.  He and his wife and two cats moved to the Asheville area seven years ago where they put in a garden and remodeled a house, in that order.  “First things first,” John says. Click here for a companion handout for this episode!  For information on additional podcasts, FREE in-person programs for care partners (caregivers), and more, please visit the ACAPcommunity website here.   No chapter in your area? Stay tuned! ACAP is growing nationwide. Check our website often for a chapter near you. Meanwhile, we hope you'll take advantage of our audio podcast archive, our YouTube archive, and more.   This episode of The Caregiver Community is made possible by our podcast sponsor, PACE@Home in Newton, NC, and sustaining partner EveryAge   

On this episode host Tony Schueth sits down with two of the industry's sharpest minds leading the charge to fix one of health IT's most persistent headaches: digital consent management. Janice Reese, Senior Consultant at Point-of-Care Partners and Program Manager for the FHIR at Scale Taskforce (FAST), and Mohammad Jafari, Co-Lead of FAST's Consent Work, offer an unflinching look at why consent is still so messy—and what it'll take to make it scalable, interoperable, and actually work for patients. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen

(Episode description by podcast producer, Sue Duffield) “Today's episode goes much deeper than just a story about host Mary Anne Oglesby-Sutherly's sister, Doris. Her heart-felt words will throttle the listener into a Netflix-like mini-series of hope, despair, miracles and over-the-top depth of secrets revealed. Mary Anne is at her finest here, but it took everything she had to disclose the family secret, all while her sister Doris transitioned into the after-life. You will find great compassion and understanding as to why Mary Anne is a soldier for the kingdom of caregiving. She searched her whole life to find the missing piece of the puzzle, only to realize that God in His infinite timing would sweep her into a week of miracles.” www.verandaministries.org  

In this episode of The Dish on Health IT, host Tony Schueth sits down with two of the industry's sharpest minds leading the charge to fix one of health IT's most persistent headaches: digital consent management. Janice Reese, Senior Consultant at Point-of-Care Partners and Program Manager for the FHIR at Scale Taskforce (FAST), and Mohammad Jafari, Co-Lead of FAST's Consent Work, offer an unflinching look at why consent is still so messy—and what it'll take to make it scalable, interoperable, and actually work for patients.The conversation kicks off with a reality check. While the question “Who can access what data and when?” might sound simple, it quickly falls apart in practice. Consent today is often paper-based, fragmented, non-interoperable, and rarely computable. Mohammad explains how even digitized forms—often scanned PDFs—are barely better than paper when it comes to machine-readability and cross-system portability. The burden lands on both sides: patients are stuck filling out redundant forms at every touchpoint, and providers face access barriers that can delay or limit care.But the episode isn't just a critique, it's a roadmap forward. Janice and Mohammad walk listeners through how FAST is approaching consent differently. Rather than focusing on the content of specific consents (like for research or behavioral health), the team is building a foundational infrastructure: a FHIR-based implementation guide that supports core consent operations, like requesting and revoking consent, delegating authority, and syncing consent decisions with digital identity and security frameworks. In other words, FAST is working on the plumbing that everyone else can build on.What sets this work apart is its real-world grounding. The team has prioritized broad stakeholder input through public calls and is actively incorporating lessons from pilot participants. Janice highlights that many organizations don't even know where to start—some have APIs, patient portals, or identity systems in place, but lack a cohesive strategy for managing consent. That's where FAST can help, not just with standards but with education and architectural guidance.The discussion also tackles the elephant in the room: policy fragmentation. With states having vastly different rules—sometimes even conflicting ones within the same region—scaling consent can feel impossible. But rather than trying to standardize policy, FAST is focused on standardizing structure. That means creating frameworks flexible enough to accommodate policy differences without hardcoding for each new rule change. Mohammad notes this kind of flexibility is key to making systems resilient and future-proof.Both guests agree that the time to act is now. Technology has matured, regulators are engaged, and public expectations for privacy and control over personal data are higher than ever. As Janice puts it, the stars are aligning. With CMS showing growing interest in digital identity and consent, and with FAST's security IG set to be required for FHIR under TEFCA in 2026, organizations can't afford to sit this one out.Whether you're a health plan, HIE, health tech vendor, or public health department, this episode makes one thing clear: scalable, patient-centered consent management isn't just possible—it's already underway. And FAST is laying the groundwork.To get involved, attend a public call (2nd & 4th Fridays at 1:00 Central/2:00 Eastern), reach out to Janice directly at janice.reese@pocp.com, or contact the team at fast@hl7.org. Now's the time to shape the future of consent—before it shapes you.

Do you ever feel dismissed or intimidated when advocating for your loved one in medical settings? That ends today.In Episode 2 of our 'Detroit Cares About Caregivers' series, medical providers share the importance of caregivers in the healthcare process. "I may know textbook, but you know your loved one," explains Dr. McNeill, Principal Investigator of the AGREED GWEP Program and the one who invited our team to create this insightful series!Dr. McNeill and her colleagues shared game-changing insights in this powerful exploration of the caregiver-provider relationship. From Detroit's innovative Rosa Parks Geriatric Center, medical professionals reveal what they wish every family caregiver understood about being true healthcare partners.The candid conversations unpack why the caregivers' perspective is invaluable in medical settings - not just welcomed, but essential. Dr. McNeill boldly repositions caregivers as "leaders of the healthcare team," pushing back against outdated hierarchies that diminish caregiver input. Meanwhile, geriatric specialists showcase thoughtful facility designs demonstrating how environments can better serve elderly patients and their caregivers.Whether you're a seasoned caregiver or new to supporting an aging loved one, these conversations offer a roadmap for confidently navigating medical partnerships. Stop feeling like an outsider in your loved one's care and start embracing your rightful position as an essential healthcare ally with the expert guidance in this episode.What conversation will you initiate with your loved one's healthcare provider after hearing these insights? Your voice matters more than you know.For more information about the AGREED grant and resources for caregivers in Detroit, visit agreed.wayne.edu. Host: J Smiles ComedyProducer: Mia Hall Editor: Annelise UdoyeThis episode was filmed at Evry Media Studios in Detroit.  Support the show"Alzheimer's is heavy but we ain't gotta be!"IG: https://www.instagram.com/parentingupFB: https://www.facebook.com/parentingupYT: https://www.youtube.com/channel/UCDGFb1t2RC_m1yMnFJ2T4jwPatreon: https://patreon.com/jsmilesstudiosTEXT 'PODCAST" to +1 404 737 1449 - to give J topic ideas, feedback, say hi!Be sure to leave us a review!

Rich and Deb Stinehart have been life-long members of All Shores and have served with Wellness Care in Europe with Global Partners for the last four years.  We are grateful for their connection with several of our partners on the field and thankful they get to be a part of our congregation throughout the year, when they are in the states.   Website: https://www.allshores.org/globaloutreach Email: thad.spring@allshores.org  

Care partners—whether family, friends, or close loved ones—are the quiet champions who help manage medications, attend appointments, offer emotional support, and walk beside patients every step of the way. But what does that look like day-to-day? And how can care partners find the support they need, too? In today's episode we heard from:  Ruthie Eastman is a former massage therapist and office administrator.  She is passionate about health and exercise and rides her three-wheel assisted tricycle regularly.  She is a new NKF Peer Mentor for Care Partners. Jim Eastman has experienced two life-changing issues where Ruthie provided the role of Care Partner.  A traumatic brain injury in 1990 established a basis and need for care for Jim.  While bumpy in the beginning, we worked it out in couple's therapy.  When CKD entered our lives, the patient/care partner dynamic had been experienced.  Three years of PD and eight years post-transplant, Ruthie continues to be a Care Partner extraordinaire! Michelle Rowlett, MSW, LICSW is a dedicated nephrology social worker with 25 years of healthcare experience, including 16 years in kidney care. She currently serves as Social Work Supervisor and CKD Program Lead at Puget Sound Kidney Centers, supporting patients and families through chronic kidney disease, dialysis, and major life transitions. Additional Resources: Life Stress Inventory NKF Peers   Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.  

Send us a text"Caregiving" on PBS, premiere date June 24th.Wellbeings Share Your StoryA Caregiver's Heart, a short filmA Journey of Resilience, a short filmSupport the Alzheimer's & Dementia Resource Center

Host Mary Anne Oglesby-Sutherly shares from her heart, knowing that she'll experience loss and grief very soon in her life, coping with the very thing which she compassionately teaches that comforts others. Caregivers, doulas and professionals like Mary Anne are typically the first line of support as they assist other dementia patients and their family members to cope with serious illness, feelings of loss, and the end of life. But now, it's her time.  This episode begins with the celebration of a new building that is shared by both the Veranda Ministries and the Preferred Care Group. An extraordinary collaboration is available to both organizations as they learn and glean from each other. And then there's Doris' story. Doris is Mary Anne's sister and her life is in the balance of God's hand right now. The grief she is feeling about her younger sibling is the emotional response to loss, defined as the individualized and personalized feelings and responses that an individual makes to real, perceived, or anticipated loss. The last gift that Mary Anne will give her sister is her presence, her words and her gift of love.

Michael Feiveson and Michelle Lester joined Newstalk KZRG to discuss an upcoming Care Partner Network Summit. Join Ted, Steve, and Lucas for the KZRG Morning Newswatch!

In this powerful episode of It Happened To Me, hosts Beth Glassman and Cathy Gildenhorn are joined by author, advocate, and healthcare leader Laura Kieger, who shares her family's deeply personal journey with FAP (Familial Adenomatous Polyposis), a rare genetic condition that significantly increases the risk of colorectal and other cancers. Laura's memoir, Summer's Complaint, chronicles the emotional and medical challenges her family has faced across generations, from diagnosis and genetic testing to coping with loss and finding resilience. As someone who tested negative for the familial mutation herself, Laura also opens up about "survivor's guilt", the burden of watching loved ones endure cancer, and how her work in healthcare and leadership has informed her approach to caregiving and advocacy. Whether you're living with a hereditary cancer condition, supporting someone who is, or simply seeking to understand the human side of genetic risk, this episode offers insight, education, and compassion. Topics Covered: What FAP is and how it differs from other hereditary cancer conditions Laura's family's diagnosis journey and how it shaped their approach to screening and prevention The emotional experience of receiving a negative genetic test result when others in your family test positive The value of genetic counseling and early detection Misconceptions about FAP and what patients and families should really know How storytelling can raise awareness and build advocacy for rare diseases Highlights from Laura's memoir, Summer's Complaint, and what she hopes readers take away Laura Kieger is a healthcare human resources consultant, leadership coach, and author of Summer's Complaint. With decades of experience improving patient and employee experiences in healthcare settings, Laura brings both professional and personal insight to the conversation around rare diseases and inherited cancer risk. She's also a passionate advocate and speaker for organizations like the Ronald McDonald House and Care Partners.   Be sure to purchase your own copy of Laura's memoir Summer's Complaint; all proceeds go to continuing education credits for healthcare providers about hereditary cancer syndromes. During the episode Laura also mentioned a study about green bananas here and a private Facebook support group here.    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.   

The Heart of Mary House (HOMH) began in a two bedroom home located in the South Nashville area on the campus of St. Edward Church. The mission of Heart of Mary House is to provide a safe, comfortable, and peaceful home-like setting for underserved people who have been given a terminal prognosis and need somewhere to stay and someone to care for them during their final days and weeks. They were able to host two residents at a time in this home. Today's episode, host Mary Anne Oglesby-Sutherly and HOMH's director, Kim Derrick. share in the celebration of a new property for HOMH that was obtained in November of 2024. They moved their first resident into the home on February 17, 2025. This home has six bedrooms, two living areas, two full baths, a full kitchen, and two office spaces. The design of the home is more perfect than they could have ever imagined. HOMH is grateful and excited to care for triple the amount of people needing a safe, comfortable and peaceful home-like setting.  Nothing could be more perfect than two very distinct ministries, with brand new locations (The Veranda Ministries and Heart of Mary House) celebrating new buildings at the same time.  Two hearts; One mission - to care for those in their desperate time of need. Ribbon cutting ceremony for the new location of “Veranda Ministries” will be  April 1st, 2025 at 1pm - 650 Nashville Pike, Building 4, Gallatin, TN 37066. Refreshments will follow. The public is invited.   https://heartofmaryhouse.org/ https://theverandaministries.org/ 

Timothy Pearman, PhD, ABPP, Northwestern University Feinberg School of Medicine, Chicago, IL Recorded on February 6, 2025 Timothy Pearman, PhD, ABPP Director, Supportive Oncology Robert H. Lurie Comprehensive Cancer Center Professor, Department of Medical Social Sciences and Psychiatry & Behavioral Sciences Northwestern University Feinberg School of Medicine Chicago, IL Join us for an insightful episode featuring Dr. Timothy Pearman from Northwestern University, as he explores the critical role of caregivers and care partners to a patient's healthcare team. Dr. Pearman discusses the challenges caregivers face, including burnout, relationship stress, and issues surrounding sex and intimacy. He also offers effective communication strategies to address these challenges and shares ways healthcare professionals can better educate and support caregivers. Tune in to this informative podcast for valuable insights and resources for caregivers! This episode is supported by Genentech, A Member of the Roche Group.

Informal care partners are essential to the care of people living with dementia, but they often experience significant burden and receive minimal training, support, and resources. Multicomponent interventions can mitigate burden and other negative consequences of caregiving. In this episode, Gordon Smith, MD, FAAN speaks with Angelina J. Polsinelli, PhD, ABPP-CN, author of the article “Care Partner Burden and Support Services in Dementia” in the Continuum® December 2024 Dementia issue. Dr. Smith is a Continuum® Audio interviewer and professor and chair of neurology at Kenneth and Dianne Wright Distinguished Chair in Clinical and Translational Research at Virginia Commonwealth University in Richmond, Virginia. Dr. Polsinelli is an assistant professor of clinical neurology at the Indiana University School of Medicine in Indianapolis, Indiana. Additional Resources Read the article: Care Partner Burden and Support Services in Dementia Subscribe to Continuum: shop.lww.com/Continuum Earn CME (available only to AAN members): continpub.com/AudioCME Continuum® Aloud (verbatim audio-book style recordings of articles available only to Continuum® subscribers): continpub.com/Aloud More about the American Academy of Neurology: aan.com Social Media facebook.com/continuumcme @ContinuumAAN Host: @gordonsmithMD Full interview transcript available here Dr Jones: This is Dr Lyell Jones, Editor-in-Chief of Continuum, the premier topic-based neurology clinical review and CME journal from the American Academy of Neurology. Thank you for joining us on Continuum Audio, which features conversations with Continuum's guest editors and authors who are the leading experts in their fields. Subscribers to the Continuum journal can read the full article or listen to verbatim recordings of the article and have access to exclusive interviews not featured on the podcast. Please visit the link in the episode notes for more information on the article, subscribing to the journal, and how to get CME. Dr Smith: This is Dr Gordon Smith. Today, I've got the great pleasure of interviewing Dr Angelina Polsinelli about her article on care partner burden and support services in dementia. This article appears in the December 2024 Continuum issue, which is on dementia. Ange, welcome to the podcast. And maybe you can begin by just introducing yourself to our audience?  Dr Polsinelli: Yeah. Well, thank you for having me. I'm very excited to be here. I'm Ange Polsinelli. I'm a neuropsychologist at Indiana University School of Medicine, where I work in the Department of Neurology. I also work with the Longitudinal Early Onset Alzheimer's Disease study that's led by Liana Apostolova. And I also do some work with the Outreach, Recruitment and Engagement Core of the Indiana Alzheimer's Disease Research Center. This topic that we're going to talk about today is extremely near and dear to my heart. Dr Smith: Well, thanks for joining me. And of course, IU is a powerhouse for Alzheimer's and basketball, in that order. So, we're really excited to have you. I'd like to get right into it. I'll emphasize, we were chatting a little bit about this, Ange, before we started recording, that your topic today is so important for all of us. And I think, you know, this is a podcast that not only neurologists listen to, but students and, and I think increasingly members of the lay public. And this conversation is going to be very important for neurologists and our neurology learners. But I lost my grandmother to Alzheimer's disease. I lost my uncle just in the last week. So, this touches all of us. So, I'm really excited. And then with that in mind, I wanted to begin with a statistic that- you can correct me if I misunderstood it, but it really blew my mind. And that is across the world, as I understand it, care partners provide one hundred and thirty three billion hours of care for people living with dementia yearly, which is pretty staggering. But what's really amazing is that by 2030 that number is expected to go to one point four trillion hours, which I couldn't grab my mind around it. So, I figured I'd try and determine how many years of person work is that and if my math is right, that's almost a hundred and sixty million person years of worth caring for people with dementia yearly across the world. One, are those numbers right? Did I get it right? And then, assuming so, can you put a human face or experience to these numbers?  Dr Polsinelli: Yeah, unfortunately those numbers are correct. And with our increasing aging population across the world, that's why you're getting that, you know, exponential increase in care per hours, compounded by the fact that the majority of the caregiving that happens is not done by doctors, physicians, but it's done by these informal care partners, these family members, these friends, these siblings, children, who are providing these really important services and unfortunately not being trained to do this, doing it largely on their own in a lot of respect. But again, these are people who are loved ones of the person living with dementia. There are a variety of kinships, as I mentioned, siblings, children, spouses, friends; and all sorts of age ranges as well. A large majority of them being spouses, and then the second largest majority being children. So, kind of a sandwich generation of people who are caring for parents with Alzheimer's or dementia and then caring for children as well. Dr Smith: Yeah, I was actually struck by the statistic that a quarter of caregivers or so called sandwich caregivers; in other words, they're taking care of a parent and a child. But listen to what you said. But just to call it out, two-thirds of care partners are women, which is a striking statistic.  Dr Polsinelli: Absolutely. Women are not only more likely to have dementia, but they are also more likely to be the care partners of somebody who has dementia. And so, the research shows, too, that if you're a care partner, you're at higher risk of developing dementia yourself. So, there's a lot of risk for women when it comes to dementia, development of dementia, but also that the burden and the majority of care needs that are that are supported by women as well. Dr Smith: Right. And there's a lot to unpack in that observation, and maybe we can come back to that. But I wonder if you might talk to us a little bit about the risk of dementia in women caregivers. That's really striking. Is there any thought regarding mechanism for that? Why is that the case? Is it a shared risk factor? Is it cause and effect? What's the story?  Dr Polsinelli: So, there are - this is kind of a dissociable or different - kind of two aspects to this, this question. There's the fact that women are at higher risk for developing dementia in general. I think the researchers feel sort of out about why exactly that is. It's not just that women are at higher risk or more likely to develop dementia because they're living longer than men, but there's probably some hormonal aspects of their higher risk factor for dementia. But then there's the other aspect of it too, is that as caregivers, caregivers are at higher risk of developing dementia. And because caregivers tend to be women, that increases or compounds the risk for women as well. We know with caregiving, particularly with someone who's living with dementia, there's more risk of developing things like depression, high stress, health problems, psychological distress, and all of these things increase somebody 's risk for developing dementia as well. Dr Smith: So, I wonder if you might talk a little more, Ange, about what you mean by burden? I think we have in our mind what that is. But in reading your article, there's a lot of- a lot more to it than may meet the eye. Dr Polsinelli: Yeah, it is a more complicated, I guess, topic or terminology that's gone through several iterations over the course of doing research into burden. But when we think about burden, it's really a kind of a combination of both objective experiences and subjective experiences. And these objective, subjective experiences fall into the categories of physical burden, emotional burden, psychological burden. So, there's a lot of different areas of life in which someone can experience burden. But really, it's a combination of factors of both the objective experience, lived experience, and the person 's perception of that experience or what they're dealing with. I should also mention that it appears to be more of that subjective experience or that perception that people have of their objective experience of stressors or burden. That really does determine the person's response to that, if whether they actually perceive their lived experience as being burdensome.  Dr Smith: One of the things I found really interesting was the societal and cultural context surrounding this, that there are different cultural expectations and societal dynamics, both in the nature of the burden care partners may feel and how they're viewed. I wonder if you could talk about that? I think it's something that it would seem all of us need to be attuned to as we're working with our patients and their families.  Dr Polsinelli: Yeah, this is a topic we could talk for a very long time on. I will try and- I will try not to kind of provide too much of a, or too lengthy of a response. But what we know now is basically that our models of stress and burden that we have typically used or historically used do not incorporate a lot of factors of cultural identity of social and structural determinants of health factors. And so, what we understand now is that stress and the way that people perceive burden is influenced by so many other factors than just kind of an experience and a perception. Because that perception is influenced by so many factors, including, as you mentioned, cultural factors that include how society's familial expectations for us, cultural expectations for us, as well as what our resources are that are determined by, again, structural and social determinants of health, what our community resources are. They're just a lot of different factors that go into how somebody perceives their ability to cope with, again, this kind of life-altering diagnosis that their loved one has received and them being the person who is caring for them through that. Dr Smith: Your article actually goes through in some detail the types of burdens and what drives the burden. And that changes over time. And so I wonder if maybe you can talk a little bit about what the specific natures of the burden are from the caregiver perspective. I mean, what  sort of tasks there are, you know, from the many of us who take care of patients, we still don't know unless we've been in the room or in the home watching this happen. So maybe you can describe that for those of our listeners who maybe haven't lived through this?  Dr Polsinelli: Yeah, absolutely. I will say upfront that the caregiving experience is going to be different for every single person. And again, kind of dependent on some of those factors that I mentioned before. So, it's going to look different for most people. It's also going to look different through the dementia journeys. The experiences and the requirements earlier on in dementia are going to be a vastly different than what occurs later on when dementia is in the more late stage, moderate or severe stages of the disease. Those care responsibilities absolutely change over the spectrum of that time as well. We know that early on the stage of disease, primary care partner might be spending forty plus hours a day. So, a full-time- or not a day. I'm sorry, a week. So, a full time job carrying it. But that number increases up to a hundred and fifty or so hours per week once the person is more advanced in their disease. So, I say that because the number of hours, I think, make all, like- putting that into perspective of somebody having a full time, multiple full time jobs, basically providing care, I think is really important. But the responsibilities of the care partner are going to range from everything from just helping the person early on in terms of managing finances or managing them, making sure they're reminding them to take their medications, scheduling their medical appointments for them, maybe taking over all of the driving to get them to their appointments or to get them to family outings and things like that. They're going to be the ones that's going to be the most responsible for reminding people to do something: to eat, to maybe stay on track for a recipe or something that they are making. So, kind of being the eyes and ears for this person right away, basically right at the beginning, even early stages. And then that progresses over time to the person who is caregiving, who is doing potentially everything for this person. So that means helping them use the restroom when they need to, helping them shower. So, there's a physical component to the caregiving as well as that- sort of what we call instrumental support in terms of organizing medical appointments and things like that. They're just basically doing it all for that person.  Dr Smith: So, what about a busy clinician who has half an hour to see a dementia patient follow up? Kind of hard to- in these days, you know, we've got, you know, these new therapies to think about as well. What advice do you have to neurologists and other professionals caring for patients? Dr Polsinelli: Yeah. And I think neurologists, I mean, we all have limited time. And I know neurology in particular is like primary care, has even more constrained time. I think one of the biggest things that neurologists can do is really check in with the care partner. So, take a moment to check in with the care partner who's there with the person with dementia to see how are they doing. You're looking for signs of burden or stress, so things like physical complaints like headaches or stomach ache, mentioning feeling burnt out or overwhelmed, maybe feeling depressed or something like that. There's also some short kind of questionnaires that you could give care partners prior to an appointment that they could fill out. You could kind of get a sense of where is this person at this point and then help connect them potentially to some resources that might be available. And I would refer people to that article that has a list of resources in there that you could just basically print out and give to somebody.  Dr Smith: Yeah, I was going to make the same point, Ange. Your article is a treasure trove of information. And you know, I'm certainly, I keep all of these on file, as you might imagine, but I'm keeping it in hand for future use. One of the things you talk about that really hit home for me among many is the idea of self-care, and I think sometimes the best care partners are susceptible to burnout because they they're so dedicated. You made the airplane oxygen mask metaphor, which I love. So maybe you can talk about what airplane oxygen masks have to do with dementia care and what advice you have for us and helping our patient's care partners take care of themselves? Dr Polsinelli: Yeah, absolutely. Self-care is the number one thing I tell care partners to do. It's also one of the hardest things for care partners to do. Like you mentioned, there is a deep, generally speaking, a deep love and caring for the person with who is living with dementia. And the focus becomes on them. And understandably so, the care partners sort of loses focus on themselves and making sure that they're doing okay. So I oftentimes use this oxygen airplane metaphor for people, which is basically, you know, when you're in an airplane and if there's some kind of pressure change in an airplane, they always tell you, put your oxygen mask on first before you help somebody else because you're not going to be any good to anybody if you're passed out. In the airplanes, the pressure changes, you know. You need to be available. you need to be getting what you need in order to help somebody else. So, I think that metaphor, that analogy really works well in dementia care is you need to be- the care partner needs to be caring for themselves and replenishing themselves in order to be the best care partner they can be for their loved one.  Dr Smith: Another challenge that, it strikes me as shared between people living with dementia and their care partner is that of social isolation and loneliness, right? If you're working a hundred and fifty hours a week doing anything, you don't have time to care for yourself or very hard to engage in social connections. And one of the loud messages I think I heard from your article is the power of social connectedness, both in terms of resilience and in many different ways. I wonder if you can talk a little bit about loneliness? And I just reflect that in a postpandemic world, this is probably a bigger issue than it was four years ago or four years and three months ago. Dr Polsinelli: Yeah, absolutely. Loneliness and social isolation was a big problem before, and it's even worse now is when I'm hearing from my patients. What I'm seeing in the literature is this postpandemic time is even more has been even more isolating and more problematic for people, but this social network cannot be, as you said, it cannot be overstated in terms of the importance for people. So that social network is important for not only providing potential instrumental care - so that practically care that care partners can use can lean on other people to come into the home to do things for the person living with dementia so the care partner can go practice self-care or go do those errands that need to be done - but also the emotional support as well that social networks can provide for people. And also, you know, social networks for not just the person, the care partner, but for the person living with dementia as well. We know that social engagement in particular is really good for brain health. I mean, we don't think about it, but social engagement is a very cognitive activity. And so, it helps give the brain a bit of a workout. So that social network is important for a lot of different reasons, and understandably a lot harder to maintain in this sort of postpandemic world as well. Dr Smith: As our time starts to come to- close to a close, we're not done yet, but I think we're probably going to have to start winding up. I wonder if we could pivot to something positive and then talk about the joy in this. And by that, I mean you describe and I think we've witnessed relationships and caring, caregiving situations that, as challenging as they are, provides fulfillment and the connection one has with a loved one or sort of that social aspect. Are there things that- predictive of that kind of positivity, and are there ways that we as professional caregivers for patients and their families can facilitate that? Dr Polsinelli: Yeah, there are. There are a couple of things. So, one of which is basically the quality of relationship between the care partner and the person living with dementia already. So that's the quality of that relationship. The better the quality of that relationship, the more likely it is that the care partner will experience more meaning and fulfillment and joy associated with caregiving, kind of outweighing that burden. But the additional piece of that is the more resources, the more mastery they feel about their caregiving or care partnering abilities, the more competent they feel and their ability to do good by the person, their loved one, the person living with dementia, the more likely they are to find that role fulfilling and meaningful. And I think that's where neurologists and other providers can kind of come in as helping people make sure that they have those resources that they are connecting to places where they can learn skills for giving appropriate care so that they can feel confident in what they're doing. There's the preexisting relationship piece that matters a lot. But I think that there's a lot of modifiability that neurologists have, too, in making a positive impact on the care partner and the person living with dementia. Dr Smith: That's really great advice, Ange. And I definitely will refer our listeners yet again to your article, which is a compendium of useful advice about this, both in terms of the text itself and in tables that provide lists of resources, websites, books, organizations, good case examples. It's a home run and I hope all of our listeners check it out. I'd like to wind up by talking a little bit about your work. And as I understand it, you obviously are very passionate about this topic, but you have specific interests in caregiver burden and underserved and marginalized communities. And then, we've touched on this, but this is a huge percentage of our population. And when you look out globally, it's even bigger than that. Tell us about what you're working on. And then maybe following that, what's the future look like? Where are we going to see advances in this in the coming years?   Dr Polsinelli: So just a really quick kind of brief history is that I've worked in dementia for almost twenty years or so now. And what I've consistently seen is when you give care partners good supports and education and resources, there are better outcomes for them and their families. The unfortunate thing is, a lot of these really great interventions and things that we have are not necessarily really accessible by a lot of people, but particularly not accessible by those living in underserved communities. The last few years in particular, I've really shifted into wanting to better understand that and better understand how do we provide culturally and socially appropriate interventions and education for these care partners and their families. With the current research project that I'm working on, we're looking at better understanding the needs of care partners of people who have early onset Alzheimer's disease, specifically from Black and African American individuals and other underrepresented groups. Again, the idea of this is to understand the needs before building an intervention for these groups, and I'm very excited about it. I know that there are lots of really great people who are working in this area, including Dr Dilworth Anderson and Kalisha Bonds Johnson, doing really fabulous work in this area. So, and building on what they're doing as well. In terms of what the future holds, one, I think we absolutely need to, we have lots of really great care partner interventions out there that have been lots of research going on, but it's not really transitioning into the clinical sphere. It's really kind of staying in that research sphere. So, I think it's really important that we get some implementation scientists who are taking those interventions and moving them into the clinical sphere, into the sort of like everyday, how do these actually work for people sphere. And then similar to some of this conversation we're having in terms of serving, making sure our interventions and making sure that our resources are appropriate and accessible for underserved communities, we really need to be taking a look at what these communities need rather than kind of saying, this is what's available. Kind of, hopefully this works for you. Speaking with these communities, engaging stakeholders and understanding what are the needs in these groups so that we can provide the appropriate resources, the appropriate interventions, the appropriate supports for care partners and people living with dementia. Dr Smith: And I'm just thinking, imagine what this looks like with effective treatments for Alzheimer's disease, that slow progression. And you know, that's going to make the caregiving even more important, it seems to me. But there's an opportunity to make it a better rewarding and a better-supported system as we develop these new therapies. So, this is a, like a Clarion call for learners listening that they should all become dementia neurologists and neuropsychologists like here. Thank you. That was outstanding. Say, Ange, I want to thank you a lot for a really engaging conversation. This fulfilled every hope I had coming into it. I was really excited to talk to you. I always love talking to neuropsychologists, but I think again, this is really useful for neurologists, learners, people who are nonneurologists everyone. And so, thank you very much. I've learned a lot and I really would encourage everyone to check out the article.  Dr Polsinelli: Well, thank you so much for having me on and giving me the opportunity to talk about the stuff that is really important to me and, I think, to most of us out there. So, hopefully people find the article and the resources in there useful and, and thanks again for having me.  Dr Smith: I'm sure they will. Again, today I've been interviewing Dr Angelina Polsinelli, whose article on care partner burden and support service in dementia appears in the most recent issue of Continuum, which is on dementia. Be sure to check out Continuum audio episodes from this and other issues. And thanks to you, our listeners, for joining us today. Dr Monteith: This is Dr Teshamae Monteith, associate editor of Continuum Audio. If you've enjoyed this episode, you'll love the journal, which is full of in-depth and clinically relevant information important for neurology practitioners. Use this link in the episode notes to learn more and subscribe. AAN members, you can get CME for listening to this interview by completing the evaluation at continpub.com/AudioCME. Thank you for listening to Continuum Audio.

Being a care partner to someone with Parkinson's disease (PD) can be a shifting and complex role, as symptoms and life circumstances change. And sometimes, this can lead to stress and even burnout for the care partner. Tune into audio from this Third Thursdays Webinar to hear expert panelists discuss how to navigate care partnership, including everyday strategies to de-stress and find supportive community. Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0 The Foundation's landmark study, the Parkinson's Progression Marker's Initiative, also known as PPMI, is recruiting volunteers. Join the study that's changing everything at michaeljfox.org/podcast-ppmi.

Marilyn Raichle - Don't Walk Away: A Care Partner's Journey. Enhancing the Lives of People Living with Dementia and their Care Partners. This is episode 732 of Teaching Learning Leading K12, an audio podcast. Marilyn Reichle, author of Don't Walk Away, grew up in the shadow of Alzheimer's. Nearly everyone in her father's family and many in her mother's had developed the disease. But Raichle became transformed in her views towards those living with dementia, inspiring the launch of a book and several non-profits that helps — and celebrates — those living with the memory-robbing disease.  Raichle began her career in the theatre, founding the Seattle International Children's Festival. She served for 11 years at North America's largest international festival for children, introducing children to world culture through the performing arts.   She then became the founding executive director of American Voices for nine years, building an informed, engaged, and good-humored community. In 2007, she received a Master of Public Administration from Harvard University's Kennedy School of Government. She received her BA from the University of Washington.  Upon returning to Seattle, her career changed when she became the family caregiver for her parents, both of whom were developing dementia. In 2010, inspired by her mother's newfound artistic ability, she founded The Art of Alzheimer's, celebrating the creativity of those living with dementia and the power of the arts to enrich and empower their lives.   In 2019 she became the Executive Director of Maude's Awards for Innovation in Alzheimer's Care, celebrating and rewarding innovative programs and practices of care that are enhancing the lives of people living with dementia, and their care partners.  Our focus today is Marilyn's book - Don't Walk Away: A Care Partner's Journey. So much to learn and think about. Thanks for listening! Please share! Before you go... You could help support this podcast by Buying Me A Coffee. Not really buying me something to drink but clicking on the link on my home page at https://stevenmiletto.com for Buy Me a Coffee or by going to this link Buy Me a Coffee. This would allow you to donate to help the show address the costs associated with producing the podcast from upgrading gear to the fees associated with producing the show. That would be cool. Thanks for thinking about it.  Hey, I've got another favor...could you share the podcast with one of your friends, colleagues, and family members? Hmmm? What do you think? Thank you! You are AWESOME! Connect & Learn More: Don't Walk Away – A Care Partner's Journey. Available Now on Amazon. (27) Marilyn Raichle | LinkedIn Length - 40:40

GEM Care partners with Blue Shield. Gov wants you to pay Medicare Part B premium.    

This week, Teepa shares her “8 S's” framework for creating meaningful and manageable holiday celebrations for people living with dementia. Emphasizing smaller, simpler gatherings with the right sensory and social environments, Teepa goes over how we balance satisfaction for everyone involved. With practical tips and a focus on flexibility, this episode offers guidance for joyful, stress-free holidays. To learn more about Positive Approach to Care, visit: www.teepasnow.com.

As we wind down the year with a final couple of episodes, this may be the most important topic. November is caregivers' awareness month. The Caregiver Action Network (CAN) mission is to promote resourcefulness and respect for tens of millions of family caregivers across the country.  This not-for-profit organization is responsible for caregivers' awareness month. It is vital that we recognize this important person in our lives. They are the unsung heroes in our journey with Parkinson's or any other chronic disease. They are often overworked, overlooked, and overwhelmed. These important people are part of the care team and should have access to the resources and assistance they deserve. So, let's get some insight into the care giving from a couple of real-life caregivers who care for their partners with Parkinson's. Each has a different situation determined by the progression of the disease, current working status as well as other factors. This episode is for everyone. You never know when you might become a caregiver for a loved one. 17 Branches and the Parkinson's Experience recognizes and appreciates all of you who care for your partners and your family. Happy Thanksgiving. I am grateful for all the people who listen to the Parkinson's Experience podcast. https://www.dbsandme.com/en.html https://www.caregiveraction.org/ https://www.parkinson.org/library/fact-sheets/coping-care-partners  https://www.pingpongparkinson.org/ 

Too often, care partners remain invisible as they deal with the emotional, physical, and even financial burdens that go along with supporting a loved one who's living with multiple sclerosis.  November is National Family Caregivers Month, and I'm devoting this entire episode to a roundtable discussion with four remarkable care partners as they share their insights, experiences, and lessons learned caring for a loved one with MS. You won't want to miss my conversation with Barbara, Marina, Maiya, and Matt. We have a lot to talk about! Are you ready for RealTalk MS??! Giving thanks  :22 This Week: A roundtable discussion with four amazing MS care partners   1:31 Barbara, Marina, Maiya, and Matt discuss their roles as care partners  1:58 Share this episode  33:22 Have you downloaded the free RealTalk MS app?  33:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/378 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The MS Care Partner Connection https://mscarepartnerconnection.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 378 Guests: Barbara, Marina, Maiya, and Matt Privacy Policy

Make sure you check out Sound Off Radio in the morning at 9am 98.5 KISS Fm The Big Station. November is National Diabetes Awareness Month. Jessica Mccray APRN,FNP-C and Michelle Hughes, HCPSC Diabetes Care Coordinator and Certified Lifestyle Coach of Health Care Partners of South Carolina will join us this week to discuss this important topic. 

Episode 44: HLTH 2024: Behind the Glitz – Real Insights and Bold Innovations in Health IT In this lively recap of the HLTH 2024 conference in Las Vegas, they dive deep into the event's biggest topics with host Tony Schueth, CEO of Point-of-Care Partners, and guest co-host Seth Joseph, Managing Director of Summit Health and contributor to Forbes.com. Known for its forward-looking focus on healthcare innovation, HLTH 2024 was packed with discussions on artificial intelligence, data interoperability, data security, and the emerging technologies shaping the industry. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen/

If you're one of the 11 million Americans providing unpaid care to a loved one with Alzheimer's disease, you know that caregiving is both incredibly rewarding and challenging. What makes caring for someone with dementia so emotionally and physically demanding, and what resources and strategies are available to help? In this episode, Bonnie Nuttkinson joins us to discuss the unique needs of dementia caregivers, tips for navigating each stage of the disease and ways to find support along the caregiving journey. Guest: Bonnie Nuttkinson, MS, research program coordinator, Wisconsin Alzheimer's Disease Research Center   Show Notes Read the Alzheimer's Association's 2024 Facts and Figures report that Dr. Chin mentioned at 7:29 Get 10 tips and more resources for caregivers from the Caregiver Action Network that Dr. Chin mentioned at the 12-minute mark. Visit “Resources for People with Dementia and Care Partners” on the Wisconsin ADRC website. Find caregiving resources on the National Institute on Aging's (NIA) Alzheimer's Caregiving website. Download or order The Caregiver's Handbook from the National Institute on Aging (NIA) for free. Alzheimers.gov has information and resources for caregivers managed by the NIA at the National Institutes of Health (NIH). Find local elder care resources with the Elder Care Locator that Bonnie mentioned at 23:30.  Learn more about Bonnie from her profile on the BerbeeWalsh Department of Emergency Medicine website. Read “UW–Madison Alzheimer's program staff featured in Badger Talks series during National Family Caregivers Month” on the Wisconsin ADRC website.   Connect with us Find transcripts and more at our website. Email Dementia Matters: dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter. Subscribe to the Wisconsin Alzheimer's Disease Research Center's e-newsletter. Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer's. All donations go toward outreach and production.

Care Partners in Action: Celebrating Friendship and Support- Episode 177 - Transcript Join host Stephanie Buxhoeveden, an MS clinician and researcher, as she welcomes Sharon Vaughn and her care friend, Eileen Dubois. In celebration of Caregivers Month, Sharon and Eileen share their inspiring friendship and the unique ways they support one another. Discover the powerful bond between a  care partner and friend living with MS, as well as practical insights and heartfelt stories that highlight the importance of connection, compassion, and resilience in the face of challenges. Here we will have uplifting conversations that honor the vital role of care partners in our lives! Thank you to EMD Serono for their support of this podcast episode. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

In this episode, Rick Kes, Health Care Partner, RSM US LLP discusses the current state of the private equity deal market, the impact of high interest rates, and the challenges faced by investors due to fewer exits in 2022 and 2023. Rick shares insights on the factors influencing deal activity and the importance of interest […]

In this episode, Rick Kes, Health Care Partner, RSM US LLP shares a market update.

Conscious Caregiving with L & L is "Tackling the Tough Conversations."   The topic of this episode is on "Legalities & Seniors" and features an All-Star Panel.   Mary Farquhar - CEO of Roger Fisher's Care: Mary Farquhar started as a colleague to her husband, Roger Fisher when he was diagnosed with Mild Cognitive Impairment in October 2018. As Roger's disease progressed to Alzheimer's, Mary reluctantly promoted herself to CEO of Roger Fisher's Care.    Attorney Ramsey Bahrawy: Attorney Ramsey Bahrawy has 43 years experience as an Estate Planning and Elder Law Attorney. During that time he has advised countless clients (individuals and families) in both simple sophisticated estate planning strategies. He also advises families with special needs, whether children or adult, on estate planning matters. Attorney Bahrawy represents elders and caregivers to plan for future or, in some circumstances, an immediate need for institutional medical care. In this regard, Attorney Bahrawy assists elders in protecting assets in order to qualify for Medicaid, making or adjusting estate plans such as Wills, Trusts, and Advance Directives, administering estates, guardianship of elderly persons, and financial elder abuse. Attorney Bahrawy is a former member of the National Academy of Elder Law Attorneys  Deborah Snyder – Care Partner for Her Husband and Aging & Disability Resource Center Specialist: Deborah Snyder is a Care Partner in her husband's care who is experiencing brain change with Behavioral variant Frontotemporal Dementia (BvFTD). He was diagnosed in 2019, and life changed. She is a Certified Independent Consultant with Positive Approach to Care, Teepa Snow, and has worked in the arena of senior care and aging resources since 2017. Deborah presently works for North Star Counsel on Aging as an Aging & Disability Resource Center (ADRC) Specialist.   Lance A. Slatton and Lori La Bey Co-Host and Produce Conscious Caregiving with L & L. Visit their website at: https://consciouscaregivingll.com/   To learn more about Lance A. Slatton and Lori La Bey you can visit their websites.    Connect with Lance A. Slatton: Official Website: https://lanceaslatton.com/ Official Website for All Home Care Matters: https://www.allhomecarematters.com  Connect with Lori La Bey Official Website: https://alzheimersspeaks.com/ Official Dementia Map Website: https://www.dementiamap.com/