Podcast appearances and mentions of aya cancer

This episode of Marrow Masters brings us an incredible conversation with Kitrena Young, a two-time cancer survivor whose story spans decades and highlights the unique challenges faced by adolescents and young adults (AYAs). We begin by learning about Kitrena's initial diagnosis of B-cell ALL with a Philadelphia chromosome at the age of eight, followed by a shocking relapse 23 years later. Her candor about how she recognized the early signs the second time around—bruising and fatigue—underscores the importance of self-awareness and advocacy.We discuss how navigating the adult healthcare system differed drastically from her pediatric experience. Kitrena takes us through her rapid efforts to get an urgent appointment and the emotional toll of being thrust back into the cancer world. With support from her brother and eventually finding care at the Memorial Sloan Kettering Cancer Center (MSKCC)  through a compassionate voice on the phone, she exemplifies what it means to be proactive in your care journey.Fertility preservation is another focal point. Kitrena recounts her decision to freeze 15 eggs before starting treatment and how her perspective on parenthood has evolved. She walks us through the emotional and physical realities of exploring surrogacy and genetic testing post-transplant—particularly the complex issue of donor DNA requiring a skin biopsy for viable results.Kitrena doesn't shy away from discussing post-treatment life: weight gain linked to early menopause, a challenging international trip filled with setbacks and triumphs, and the frustrations of altered tastes and capabilities. Despite it all, she maintains a remarkable sense of humor and determination to continue traveling and living fully.Family and caregiver dynamics are woven throughout her story. She speaks lovingly about her partner's unwavering support and the strength of her younger brother, who stepped up when needed most. Her message to caregivers includes practical advice—especially around vigilance with medical billing, noting errors she encountered from appointments she never attended.Finally, Kitrena emphasizes the growing importance of therapy for both patients and caregivers. She encourages the AYA community to use available resources to work through trauma, grief, and uncertainty—pointing to virtual options that didn't exist in her earlier experience.Kitrena's journey is one of persistence, clarity, and empowerment. She brings vital, firsthand wisdom to the AYA cancer space, reminding us that while every survivor's path is different, no one should walk it alone.Thanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/FInancial Resource from the LINK: https://www.nbmtlink.org/financebookresources/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we sit down with Dr. Chris Dandoy, Associate Professor of Clinical Pediatrics and bone marrow transplant physician at Cincinnati Children's Hospital. Dr. Dandoy shares his deep experience working with adolescents and young adults (AYAs), focusing on the unique challenges they face during and after cancer treatment. Our conversation centers around empowering AYAs to take ownership of their healthcare journey, improving outcomes, and restoring quality of life.Dr. Dandoy introduces us to Engraft, a collaborative learning network he founded, which unites providers, patients, families, industry partners, and nonprofits to improve survival and quality of life post-stem cell transplant. Rather than each center working in isolation, Engraft allows for real-time communication and problem-solving across 15 centers, helping everyone learn from each other's best practices.A core message in our conversation is the importance of ownership—encouraging AYAs to ask questions, understand their medications, and advocate for themselves. We explore the concept of “ownership” through examples, like advocating for the removal of central lines after they're no longer medically necessary, and understanding the role and risks of medications such as immunosuppressants and anti-infectives.Dr. Dandoy walks us through strategies to support medication adherence, such as using reminder apps, setting daily routines, and involving friends or caregivers for support. He also emphasizes the temporary nature of this intense medication schedule, helping patients see it as a phase, not a life sentence.We highlight how important it is for AYAs to stay engaged—learning about their labs, asking what new medications are for, and writing down questions for their healthcare team. Chris stresses that they don't have to memorize everything; the goal is communication and awareness, not perfection.For caregivers, Chris offers validation and encouragement, reminding them this is a marathon with tough stretches, but also moments of progress. He urges caregivers to walk beside their loved ones—not behind or in front—fostering independence and shared decision-making.Dr. Dandoy closes with an inspiring story of a young survivor who endured ICU-level complications but is now back to running races and embracing life fully. It's a powerful reminder that while the transplant journey is grueling, it's also transformative.More:Engraft Learning Network: https://www.engraftlearningnetwork.org/Thanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we speak with Emily Long Sarro, a board-certified family nurse practitioner specializing in adolescent and young adult (AYA) care at Memorial Sloan Kettering Cancer Center. We focus on the unique challenges AYAs face before, during, and after a stem cell transplant. Emily shares how this age group, defined as 15 years old to 39 years old by the National Cancer Institute, is often overlooked in the healthcare system, stuck between pediatric and adult care settings. They're navigating identity, relationships, careers, and independence—while also managing a serious illness, which can disrupt or halt life milestones.We discuss how Emily approaches AYA care with a holistic mindset—merging clinical treatment with emotional and mental health support. She emphasizes the importance of granting young patients autonomy and private space, especially when families may unintentionally overstep. She urges healthcare providers to always include mental health support in the treatment plan, noting that anxiety, depression, and even PTSD are common in this group, both during and long after treatment.Emily also stresses the need for daily coping tools like journaling, movement, and meditation to supplement infrequent counseling sessions. She encourages us to create trust by really listening, especially since many AYAs feel dismissed in early diagnostic stages due to their age.We then dive into critical but often unspoken topics: fertility preservation, sexual health, and survivorship. Emily outlines time-sensitive fertility options and highlights the emotional toll if these aren't addressed early. She covers the hidden costs of care and offers resource suggestions like Livestrong and Cancer and Careers. She also calls attention to "silent disabilities" that persist post-transplant and affect career and daily function, emphasizing self-advocacy in the workplace. Coworkers and others may not "see" these limitations, but accommodations are often necessary.We discuss milestones missed due to treatment and the emotional weight of watching peers move on through social media. Emily suggests practical ways to stay socially connected, such as virtual events and platforms like Cancer Buddy. For caregivers, she reminds us that support often means just being present and handling small tasks that feel overwhelming to the patient.  It's important to hold space for patients' sadness over missing milestones, but when appropriate, the big picture remains: they may be sacrificing a few milestones now to experience many more later.The episode closes with a deeply moving survivor story—a young man from The Bronx who overcame mistrust in the medical system, underwent a transplant, and now runs a thriving music production business. His resilience and transformation encapsulate the hope and strength that defines this patient group.More:Marrow Masters Season 9, Episode 2, with fertility resources in Show Notes: https://marrowmasters.simplecast.com/episodes/preserving-fertility-through-cancer-treatmentCancerCare – https://www.cancercare.orgImerman's Angels – https://imermanangels.orgLivestrong Fertility – https://livestrong.org/how-we-help/livestrong-fertility/Worth the Wait – https://worththewaitcharity.com/Maggie's Dream (Fertility Preservation Assistance)–https://www.teammaggiesdream.org/Cancer and Careers – https://www.cancerandcareers.orgCancer Buddy App (Bone Marrow Foundation) –https://bonemarrow.org/support-and-financial-aid-2/support/about-cancerbuddyThanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we sit down with Nick Giallourakis, Executive Director of the Steven G. Cancer Foundation and co-founder of Elephants and Tea, a digital magazine and support platform for adolescent and young adult (AYA) cancer patients and survivors. We begin by learning about Nick's brother, Steve, whose incredible journey as a five-time cancer survivor—including osteosarcoma, Secondary AML, renal cell carcinoma, and pleomorphic sarcoma—serves as the foundation and inspiration for Nick's work.Nick walks us through the origins of Elephants and Tea, which he co-founded with his mother, Angie. The platform emerged from a need for authentic, uncensored storytelling within the AYA cancer space. They pivoted from a traditional media model to a platform where survivors share their stories in their own words. This decision came from listening to survivors who didn't want their experiences diluted. The magazine's name—suggested through a contest—symbolizes the raw truth of cancer as the “elephant in the room,” while “tea” represents the comfort found in open dialogue.Nick highlights key challenges AYAs face: financial toxicity, unstable careers, insurance struggles, dating, and misdiagnoses due to age biases. He's encouraged by the growing trend of self-advocacy in this group, including the rise in second opinions. We reflect on the post-COVID landscape, noting how virtual platforms opened doors for more isolated individuals, while in-person connections remain essential for others.We touch on caregiving—especially for AYAs where roles can be filled by peers, not just parents. Nick emphasizes the importance of caregivers asking for help and delegating tasks. He also speaks candidly about the emotional toll of losing community members and the need to acknowledge and process that grief.We explore how storytelling fuels community-building at Elephants and Tea. The magazine has contributors from 15 countries, highlighting a global hunger for connection and support. Nick shares how partnerships—like their impactful collaboration with Walgreens—are making tangible changes, such as mandatory fertility counseling for patients receiving chemo for the first time. Behind the scenes, they're working with industry and medical organizations to use these stories for systemic change.As for what's next, Elephants and Tea continues to expand its in-person programming, including regional magazine release events. They're consistently surveying their audience to ensure their efforts are aligned with current needs. Nick leaves us with a heartfelt story of a late community member who, through a simple virtual Halloween hangout, helped spark deeper bonds and outreach across the cancer community.More: Elephants and Tea: https://elephantsandtea.comSteven G. AYA Cancer Research Fund: https://stevengcancerfoundation.orgCancer and Fertility Magazine produced by Elephants and Tea WITH Walgreens: https://elephantsandtea.org/cancer-fertility/YA Cancer Gabfest (Cactus Cancer Society): https://cactuscancer.org/ya-cancer-gabfestStupid Cancer: https://stupidcancer.org/Thanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

osTEAo co-hosts Mia and Sammy sit down with fellow OsteoWarriors Andrew and Mackenzie for a real, raw, and refreshingly honest convo about FOMO—Fear of Missing Out—as young adult cancer survivors. From missing prom and sports to navigating dating and college with a whole new perspective, these resilient humans get into what it actually feels like to rebuild a life after treatment.They talk about setting boundaries on social media, finding new passions, and surrounding yourself with people who truly get it. They also dive into the hard but vital work of self-advocacy and honest communication.

In the latest episode ofosTEAo: Spilling the Tea on Osteosarcoma and AYA Cancer, young adult osteosarcoma survivors Mia, Sammy, Sloan, and Mackenzie share how their pets became their greatest sources of comfort, laughter, and unwavering support during treatment and recovery.From Sloan's dog Sam instinctively wrapping around their leg post-surgery to Mackenzie's pup carefully avoiding pressure on her biopsy site, these furry friends always seemed to know when their humans needed extra love. Mia recalls how her cat Enzo made a dramatic mess the moment she returned from the hospital—because, of course, he needed to remind her who was boss! And Sammy's pet was her rock through every twist and turn, proving that while so much changes during cancer treatment, the love of a pet remains constant.Tune in for heartfelt stories, funny pet antics, and a celebration of the incredible healing power of animals. Because sometimes, the best medicine has four legs and a wagging tail.

In this episode of 'Navigating Cancer TOGETHER,' host Talaya Dendy welcomes Rick Czaplewski, a 28-year survivor of Hodgkin's disease. Rick shares his inspiring story of being diagnosed during his freshman year of college, undergoing intensive treatment, and ultimately overcoming the illness. Despite the challenges, Rick relays how he harnessed his optimism and determination to pursue remarkable feats like climbing Mount Rainier and running the Boston Marathon. He also discusses the importance of maintaining physical activity and emotional expression during and after cancer treatment. Rick's memoir, 'Better Dirty Than Done,' captures his journey, and he offers touching advice to those facing cancer today. The episode emphasizes the mental, physical, and emotional elements crucial to living beyond a cancer diagnosis.✨Highlights from the show:[03:27] Symptoms and Diagnosis[10:23] The Relapse and Determination[23:54] Facing Cancer Alone: The Struggle for Support[24:40] Finding Strength in Sports and Mount Rainier[28:45] Life After Cancer: Embracing Physical and Mental Health[31:35] Long-Term Side Effects and the Need for Comprehensive CareReflection: What strengths and resources can you draw upon in your own life to overcome challenges?

Mia is joined by OsteoWarriors Mackenzie, Sammy, and Sean to share their experiences with long-term side effects from osteosarcoma treatment. Nausea and hair loss are well-known side effects of chemotherapy - but what are some of the side effects that linger long after chemotherapy is over? Listen in on this frank discussion on why it can feel like cancer is never done with you. The group talks about their own experiences with fatigue, hearing loss, cardiomyopathy, infertility, depression, and managing daily life with disabilities. The word balance comes up a lot in the conversation - and the group also talks about their favorite self-care techniques that help them through "mourning the person I used to be and trying to embrace the person I've become."

April is known as Adolescent and Young Adult Cancer Awareness Month. For this Dish with Nish podcast, Dr. Andrew Nish interviews Ben Hoffman, a recent cancer survivor along with his physician to talk about his cancer journey. 

Camille and Mia are joined by OsteoWarriors Elise, Penelope, Sammy and Sloane to share their experiences and tips for traveling after limb salvage surgery, amputation, and/or during treatment. They discuss navigating the airport, what the deal is with wheelchairs at the aiport, getting through TSA with a prosthesis, how to find leg room in cramped airplanes and cars, managing public transportation, tips for flying, and traveling outside the US.  Aside from learning some practical tips to make traveling a bit easier, you'll laugh at some of the travel horror stories, and get advice on how to handle Uber drivers that like to dispense medical advice, funny looks when using a wheelchair or grabbing a disabled seat, and other awkward situations.

Adolescent and Young Adult (AYA) Cancer Awareness Week, April 1 to 5, 2024, is a time to shine a spotlight on adolescent and young adult cancer patients and survivors. To commemorate the week, Lauren Ghazal, Megan-Claire Chase, and Allison Rosen, all members of the Oncology Data Advisor Editorial Board, sat down for a conversation to highlight the issues that AYA cancer patients face, including fertility preservation and financial toxicity; the need to ensure that race, ethnicity, and sexual orientation are not overlooked when building welcoming support spaces for all patients; and the value of turning to the AYA community for support while also serving as your own best advocate.

A cancer diagnosis and the treatment that follows can trigger stress and anxiety. Camille is joined this week by Dr. Abby Rosenberg, an expert in helping AYA cancer patients manage stress. They chat about why being diagnosed as an adolescent/young adult has particular challenges, tools and techniques for managing stress, and how palliative care is different from hospice care (spoiler alert - it's not just for end of life care!). Listen in to learn why stress is normal, the three categories of resilience resources, the power of distraction, the benefit of emotions, and how palliative care helps the entire care team focus on what is important to the patient. Abby R. Rosenberg, MD, MS, MA, joined the team at Boston Children's Hospital as the Director of Palliative Care in 2023. She is also the Chief of Pediatric Palliative Care at the Dana-Farber Cancer Institute. Prior to that, she was at the University of Washington and Seattle Children's Hospital, where she served as the Director of Survivorship and Outcomes Research and Director of Pediatrics at the Cambia Palliative Care Center of Excellence. Both Dr. Rosenberg's clinical approach and her research focus on helping people facing serious illness to live their best lives, for as long as possible. Specifically, she and her team develop programs that help patients and families build resilience and optimize their quality of life.

Listen in this month as Mia and Sloane have a gab sesh about the daily interactions and challenges as an AYA living with cancer that get under their skin. Hear their thoughts on why there is a lot of room for improvement on Hollywood's representation of pediatric cancer patients, how cancer limits participation in a society that doesn't address the needs of people with disabilities, the difficulties around sharing their cancer story, the cliche of being brave, and why they wish there was an off button for snapchat memories. --- What We Do at MIB Agents: PROGRAMS: End-of-Life MISSIONS Gamer Agents Agent Writers Prayer Agents Healing Hearts - Bereaved Parent and Sibling Support Ambassador Agents - Peer Support Warrior Mail Young Adult Survivorship Support Group EDUCATION for physicians, researchers and families: OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma MIB Book: Osteosarcoma: From our Families to Yours RESEARCH: Annual MIB FACTOR Research Conference Funding multiple $100,000 and $50,000 grants annually for OS research MIB Testing & Research Directory The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments. Help us MakeItBetter. https://www.mibagents.org​ Help support MIB Agents, Donate here https://give-usa.keela.co/embed/YAipuSaWxHPJP7RCJ SUBSCRIBE for all the Osteosarcoma Intel

Supportive Care Matters: A Podcast by Dr. Bogda KoczwaraWelcome to the second episode of Supportive Care Matters, a podcast Hosted by Medical Oncologist, Dr. Bogda Koczwara from Adelaide, Australia.How can you improve cancer care support services for thousands of patients at a time? Can systems thinking play a role in transforming youth cancer services? What is important when designing tailored and effective support services for young patients who will be cancer survivors for 60 years?In today's podcast, Dr. Bogda Koczwara finds out why supportive care matters to Siona Hardy, Director of the Queensland Youth Cancer Service. This conversation is sponsored by Canteen and produced by The Oncology Network.TO VIEW SHOW NOTES AND MORE INFORMATION ABOUT SUPPORTIVE CARE MATTERS, HEAD TO WWW.ONCOLOGYNEWS.COM.AU

Listen to this live interview recorded by Oncology Data Advisor at the 2023 American Society of Clinical Oncology (ASCO) Annual Meeting with Stephanie Smith, MD!

A cancer diagnosis can affect your ability to do the things you love, like sports, dance, and school, stripping your identity of your hobbies and passions. OsteoWarriors Camille and Mia chat about this loss of identity and how they cope.Listen in as they discuss what it's like dealing with a sense of loss of self and how they manage to form an identity outside of cancer. --- What We Do at MIB Agents: PROGRAMS: End-of-Life MISSIONS Gamer Agents Agent Writers Prayer Agents Healing Hearts - Bereaved Parent and Sibling Support Ambassador Agents - Peer Support Warrior Mail Young Adult Survivorship Support Group EDUCATION for physicians, researchers and families: OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma MIB Book: Osteosarcoma: From our Families to Yours RESEARCH: Annual MIB FACTOR Research Conference Funding multiple $100,000 and $50,000 grants annually for OS research MIB Testing & Research Directory The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments. Help us MakeItBetter. https://www.mibagents.org​ Help support MIB Agents, Donate here https://give-usa.keela.co/embed/YAipuSaWxHPJP7RCJ SUBSCRIBE for all the Osteosarcoma Intel

This month, Dr. Nish talks about the Adolescent Young Adult (AYA) Cancer program. 

Matt dives into his experience with UC and the following topics/ themes: Having a second chance at life Surviving life weighing 101 - 111 lbs as a 5'7 male Colonoscopy/ j-pouch surgery and complications Maintaining a positive mindset Advocating for your health Finding the right medical team Power of prayer and synchronicities Fostering friendships to help your healing Setting mini-goals Put one foot in front of the other Getting over toxic positivity Post-traumatic stress and post-traumatic growth Western versus Eastern modalities to heal "I will grow stronger from this... Watch me." "Our attitude toward life determines life's attitude toward us." Follow him here: @mattybowels TikTok/ Instagram My name is Alexa and I am the host of this podcast and #1 best-selling author of Power to Persevere: Inspiring Stories to Help You Get Through Challenging Moments. My goal is to help improve your life through wellness tips and motivation, and support you on your journey through life. Make sure you subscribe and stay tuned for new episodes weekly. Connect with me on Instagram @alexacuc and alexacuc.com Read my book: https://www.amazon.com/Power-Persevere-Inspiring-Stories-Challenging/dp/1641373024 Shop my Amazon: https://www.amazon.com/shop/alexacuc

If you or someone you love has experienced cancer as an adolescent or young adult, you know how isolating and lonely it can feel. In finding this podcast, AYA Cancer: Unfiltered, we can say with confidence that you are in the right place. Whether you are already a member of our community, our Herd as we like to call them, or you are brand new to our content, welcome! The elephant in the room is cancer, and tea is the relief that conversation provides. Here, we will bring the pages of Elephants and Tea Magazine to life – having tough conversations about the realities of going through cancer as an AYA. We guarantee that, just like after reading our magazine or attending our virtual events, you will feel less alone in what you are going through after listening to each episode. If you are not already a subscriber of our magazine – no fear! It is completely free. Visit our website: elephantsandtea.com and click “subscribe now”. You may choose to receive our free quarterly magazines either digitally, in print, or both! We hope that despite what you are going through, you find comfort knowing that you are not alone and that there is a Herd of people who get it here for you.

In this episode, tune is as Steve Giallourakis and Lisa Orr discuss the reasons behind the creation of this podcast! Who are we and why did we create it? What purpose do we hope that it serves? Whether you are already a member of our community, our Herd as we like to call them, or you are brand new to our content, welcome! The elephant in the room is cancer, and tea is the relief that conversation provides. Here, we will bring the pages of Elephants and Tea Magazine to life – having tough conversations about the realities of going through cancer as an AYA. We guarantee that, just like after reading our magazine or attending our virtual events, you will feel less alone in what you are going through after listening to each episode. If you are not already a subscriber of our magazine – no fear! It is completely free. Visit our website: elephantsandtea.com and click “subscribe now”. You may choose to receive our free quarterly magazines either digitally, in print, or both! We hope that despite what you are going through, you find comfort knowing that you are not alone and that there is a Herd of people who get it here for you.

Welcome to the series finale of The Cancer Mavericks. In this final episode, we reflect on the first seven episodes through the lens of history and progress with a series of insightful conversations featuring some of healthcare's most influential and visionary voices across the past four decades. If history is a teacher, we have learned that change can happen, albeit slowly. But it is only when the people stand up, organize and activate their voices demanding change, that the culture will shift, the institutions will pivot, and the very system itself will be forced by the will of the citizens to bend towards the arc of justice. Thank you for joining us for this groundbreaking series. If you like this series, please leave a review and a rating on your favorite podcast app. To learn more about The Cancer Mavericks, visit https://CancerMavericks.com. To learn more about OffScrip Health, visit https://OffScrip.com.FEATURED VOICESGil BasheChair Global Health and Purpose, FINN PartnersJohn D. Carpten, Ph.D.President's Cancer Panel (Emeritus)Director, Institute of Translational GenomicsKeck School of Medicine at USCDeanna DarlingtonPresident at Links2EquityKenny KaneYoung Adult Cancer Advocacy PioneerCo-Founder/CEO, Stupid Cancer (Former)Margaret LawsPresident and CEO, Hope LabLisa C. Richardson, MD, MPHDivision Director, Cancer Prevention and Control at The CDCCatharine Young, Ph.D.Assistant Director of Cancer Moonshot Engagement and PolicyThe White HouseSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Podcast description:“Cancer is a disease of the old”...bullshit.Cancer is a disease that affects many people, young & old.  In fact, younger patients often have to undergo more aggressive & more extensive treatment for their disease, leaving them with significant impairments.Beyond the physical, cancer has a tremendously pervasive effect on AYA patients, impacting their finances, careers, relationships, fertility, & so much more.Rosalina of the Too Young For This Shit Podcast stopped by to discuss her AYA breast cancer experience, plus how she's curating a supportive community for young breast cancer survivors with her co-host Shauna.Listen in now! The Wealthy Coach Podcast Hey Coaches, Practitioners & Healers! Go from 0 clients to a 6-Figure Online Biz!Listen on: Apple Podcasts SpotifyGrab your free Ultimate Oncology Specialist Study Guide!Preparing for the ABPTS Oncology Specialist Certification Exam is one of the best ways to become an expert OncoPT.My new Ultimate Oncology Specialist Study Guide will help you start your exam prep on the right foot, so you can prepare for success & treat your patients like an expert.Grab your FREE study guide now! Register for the Pediatric Lymphedema pre-conference workshop at CSM 2023!Children with lymphedema often wait months to years for treatment because most therapists don't treat pediatric lymphedema. We're changing this, with our pre-conference workshop at APTA-CSM 2023!When you register for CSM, make sure you select the pre-conference workshop Pediatric Lymphedema: Treating Lymphedema to Improve Mobility. See you in San Diego!

Insights from this podcast episode: Experiencing breast cancer as an AYA (adolescent and young adult)  Self-care, the role of journaling and mental health as a cancer patient The role and impact of community for supporting young cancer survivors and patients Yvonne had been working in healthcare for over 9 years when she felt a tightness in her left chest. At first she thought it was from doing too many push ups or a pulled muscle. When she examined it closely, she discovered a lump. Yvonne waited 2 weeks to see her OB/Gyn. She ended up getting her first (of many) mammograms the day after Christmas, followed by a biopsy. She received the fated cancer call the Monday before New Year's Eve in 2019. Diagnosed at 37, Yvonne started treatment in 2020. She (along with the podcast host, Samira Daswani) experience the new healthcare environment with the introduction of Covid-19 to the world. Navigating cancer is one thing, navigating cancer during a pandemic is a whole other world. Both Yvonne and Samira share their experiences in this episode on what it was like to manage both C's -- Cancer & Covid.  When face masks became the norm, and 6-feet apart the slogan, as an immunocompromised person, it was a terrifying time. Going to the hospital for appointments, treatments, and sadly, being admitted, had a whole new isolation to it. The healing promise became all the more challenging.  Yvonne had amazing support from her family and close friends in spite of these social distancing protocols. Yvonne finished her last chemo infusion in July 2020 when she ventured into UCSF's gift shop. There she saw a book with a title that made her smile under her hospital given mask. “Agony and Absurdity: Adventures in Cancer-land. Young Women and Breast Cancer An Anthology.” This is how Yvonne found BAYS. Yvonne has been a member of BAYS after her “active” treatment ended. She is currently on the committee for the 4th Anthology. Yvonne looks forward to helping the fellow members as BAYS has helped her with her survivorship journey. Key Moments:  11 minutes and 26 seconds: “I think the biggest learning from the tribe is self care and acknowledging that is it is okay to slow down and it is okay to not do the 5 million things you were doing before you were diagnosed with breast cancer.” 32 minutes and 41 seconds: “I would like to see a world in which patients and caregivers are comfortable in looking at their data, feel comfortable balancing risk vis-a-vis their quality of life, vis-a-vis their context of life “ 35 minutes and 43 seconds: “Not everyone can grasp the concept of clinical trial...if you understand what your options are, it is super helpful to feel that you are not just  a thing in a petri dish for them to look at, you are more than that." Show Notes: Learn more about BAYS on their website: https://bayareayoungsurvivors.org/ Disclaimer: This podcast is for general informational purposes only and does not constitute the practice of medicine, nursing or other professional health care services, including the giving of medical advice, and no doctor/patient relationship is formed. The use of information on this podcast or materials linked from this podcast is at the user's own risk. The content of this podcast is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Users should not disregard, or delay in obtaining, medical advice for any medical condition they may have, and should seek the assistance of their health care professionals for any such conditions. --- Support this podcast: https://podcasters.spotify.com/pod/show/manta-cares/support

This episode is not just for those affected by cancer. Recording this episode put my life into perspective. If you are going through a challenging time and need inspiration, listen to this episode with Matt Ode – an inspirational light! At the age of 25, he was diagnosed with stage 3 testicular cancer. Not only is he a survivor of cancer, but he is a survivor of several surgeries, a coma, and more. Even with his traumatic experience, he celebrates life, and.. we hear wedding bells and see synchronicities!  You can connect with Matt here: https://www.mattodespeaks.com/ This is a space to elevate your life and help you feel more powerful. My name is Alexa and I am the host of this podcast and #1 best-selling author of Power to Persevere: Inspiring Stories to Help You Get Through Challenging Moments. My goal is to help improve your life through wellness tips and motivation, and support you on your journey through life. Make sure you subscribe and stay tuned for new episodes weekly. Connect with me on Instagram @alexacuc and alexacuc.com

Season 5 Episode 4 Join me at the mic with Meg Gallagher, who discusses everything from friendship and the end of treatment. What she says about childhood cancer and aya cancer might surprise you. She gives a fresh perspective on life with and after cancer and advice for caregivers—a remarkable young woman and survivor of Leukemia.For show notes and more:www.livingwithscanxiety.org/shownotesSupport the show (https://paypal.me/Scanxiety)

Season 5 Episode 2 Join me with Jessica Nelson of My Cancer Story. She is not only a podcaster but a thriver following a battle with Thyroid Cancer. As a thirty-year-old AYA patient, she struggled with cancer on multiple levels. Now thriving, she tells her story here on Living With Scanxiety.For Show Notes:www.livingwithscanxiety.com/shownotesSupport the show (https://paypal.me/Scanxiety)

A cancer diagnosis sucks no matter what — but factors like income, education, racism, geography, housing, and access to health care, known as "social determinants of health," can worsen the burden. When researchers zoom out from individual experiences and survey cancer survivors, they see patterns called social determinants of health. Individual circumstances such as economic stability, physical environment, racial bias, proximity to a provider, or fluency in that provider's language can influence a survivor's health outcome before any cancer treatment begins. In this episode, we share stories of cancer mavericks who rebelled against the foreshadowing of health disparities. 23-year survivor Mary P. Lovato started a support group at her pueblo in New Mexico that expanded to reach American Indian and Alaska Native tribes across the United States. After learning she had breast cancer at 31, Maimah Karmo made it her mission to advocate for young women, Black women, and those with metastatic disease — and to end health disparities in our lifetime. Finally, health disparities researcher Dr. Carmen Guerra shares how the University of Pennsylvania's Abramson Cancer Center nearly doubled the number of Black patients in its clinical trials. For more information about this series, visit https://CancerMavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

For decades, the portrayal of cancer in movies and television was grim. If a character was diagnosed with cancer, it was a near certainty they'd be dead by the credits. But, like cancer treatment itself, Hollywood evolved, and many storylines about cancer became stories of survival.In this episode, we ask the question, "Who influences us and why?" From musicians to television stars, film producers to televised cancer screenings, when celebrities lend their voices to raising awareness and fundraising, that kind of star power can move mountains. Join us as we hear from voices such as actor Patrick Dempsey, StandUp2Cancer Co-Founders Katie Couric, Pam Williams, the late Laura Ziskin. Also appearing in this episode: Steven Hoffman (Professor of Global Health Law and Political Science at York University in Toronto, Canada,) Dr. Larissa Nekhlyudov (Director of Internal Medicine for Cancer Survivors at the Dana Farber Cancer Institute,) Kami Kosenko (Professor of Communication at North Carolina State University,) and Milton Kent (Former reporter and sports columnist for The Baltimore Sun).For more information about this series, visit https://CancerMavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Facing a diagnosis of cancer at any age is horrible. But for young adults, it's just plain different. Not better. Not worse. Different. Those diagnosed between the ages of 15 and 39 are on a planet all their own, often left to fend for themselves as lost voices sandwiched between pediatrics and adult cancer. The consequences of living with, through, and, ideally, beyond cancer carries with it a whole host of unique long-term issues, issues that had fallen under the radar and gone ignored by the system for far too long.In this episode, we talk to a new generation of cancer mavericks like Tamika Felder, Heidi Adams, Doug Ulman, and Lindsay Nohr-Beck, who revived a dying national conversation on cancer survivorship in the earliest days of the Internet. They created edgy websites, forced doctors to listen by creating fertility preservation guidelines, and fought to bring the invisible and underserved voice of the young adult cancer community into the national public spotlight.For more information about this series, visit https://CancerMavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, Emily Gentry, BSN, RN, HON-ONN-CG, OCN is joined by Janine E. Guglielmino, MA, Vice President, Mission Delivery, Living Beyond Breast Cancer, and Jasmine Souers, Co-Founder, Chief Visionary Officer, For the Breast of Us to discuss Living Beyond Breast Cancer's recently conducted needs assessment of young women with breast cancer. Read more about this episode on AONNonline.org.

In just over 20 years, the number of cancer survivors in the United States has doubled to 17 million survivors, each confronting their new (ab)normal lives. From chemo brain to PTSD, medical debt to workplace discrimination, this episode follows survivors along with their unique—and often difficult—paths post-treatment. In this episode, we hear from some of the godmothers of the cancer survivorship movement like Dr. Patricia Ganz and Barbara Hoffman and “everyday mavericks” who are forging ahead into life after cancer. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Advocacy can take many forms in the cancer community — from advocating for yourself or a loved one to receive the best possible treatment to calling your Congressperson or testifying on Capitol Hill to demand increased access to care. This episode explores different ways cancer mavericks have elevated survivors' needs and improved their lives, including the pioneering patient navigation model created by Dr. Harold Freeman at Harlem Hospital, the story of Ellen Stovall's fearless and collaborative approach to policy, shaped around a shared agenda to represent the needs of all cancer survivors, and the landmark 1998 March on Washington called Coming Together To Conquer Cancer. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

CANCER FOR BITCHFEST | We've been squirreling away your complaints big and small like precious little acorns, and they've finally grown into a mighty oak of objections! A pine of protest! A…gripevine? Anyway, we're airing your grievances, from A (awkward convos with clueless doctors) to, well, X at least. (Exes who slide into your DMs post-diagnosis, that is!) Our precious listeners came through and it's an hour of straight-up bitchin. But first? Stop the presses! Ya gals met IRL and are coming to you from Stef's minivan. The good news: we still have a podcast. The bad news: Applebee's was closed. The other news: we've coined a term for know-it-all #cancerpeople. Take a seat, Cancer Cathy; nobody needs your negativity! Then, RATS wants you lil sweeties with blood cancer to keep your covid (face)guard up. Studies show the vaccine is less effective-to-totally ineffective for you! Yikes, dude! +  +  + Guidance on blood cancers and covid-19 from LLS: https://www.lls.org/who-we-are/covid-19-vaccines-faq-patients-and-caregiversCovid-19 & blood cancer studies: https://cancerdiscovery.aacrjournals.org/content/11/7/OF4A round-up of post-mastectomy bras from Rethink Breast Cancer: https://rethinkbreastcancer.com/post-mastectomy-lingerie-love/Amy's pedge willow recommendation: https://www.costco.com/brentwood-home-whitney-wedge-pillow-with-gel-memory-foam.product.100365598.htmlBuy us a coffee and support the podcast at https://www.buymeacoffee.com/amyandstefRATS theme song by Jessica Boudreaux Theme music by VyvyvyrFollow us  on Instagram @cancerforbreakfastFollow us on Twitter @cancerbreakfast 

By the 1980s, cancer was no longer a death sentence. But the question of what surviving actually meant was unanswered. Cancer survivors had to navigate issues around employment, relationships, and the emotional and physical side effects of treatment in a world that largely didn't know what to do with them. (and they were still called “victims.”) In 1985, a young doctor named Fitzhugh Mullan wrote an essay called “Seasons of Survival” about his own experience with cancer. His piece helped popularize the term “cancer survivor” and resonated with a growing number of survivors, who were starting to form support groups around the country. Among them was Catherine Logan Carrillo, the founder of People Living Through Cancer in New Mexico, who asked Fitzhugh to help her convene an “alumni association” for cancer survivors. And they did, during one monumental weekend in Albuquerque. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Listen, we need to talk about your drinking. And our drinking. Do booze and cancer mix? Some of us feel judged by peers, family, and even ourselves for post-diagnosis merriment. Do you have fear and shame around cracking a beer? The gals ponder: can deciding to “live a little” cause us to “die a little” (more quickly)? Some listeners say “bottoms up!” while others just can't hang with the more severe hangovers and guilt. Then, what's with the pressure on cancer people to become exemplary, sober, organic-eating triathletes? Stef is the same person she was before; Amy considers becoming a spin instructor. What exactly is the REAL risk of dranking dranks AFTER diagnosis, when the horse is already out of the barn?  Should we all  just “ask a tail to hide”? In our premiere cancer-celeb gossip segment: this just in, Sheryl Crow and Lance Armstrong split! (In 2006!) And RATS asks: what makes alcohol so bad for our bods, anyway, and how do statistics even work? Plus, we share 5 great mocktail recipes. Just kidding—there are no great mocktails! To learn more about the RATS in this episode, check out this NYT article, and this one, too.RATS theme song by Jessica Boudreaux of Summer CannibalsTheme music by VyvyvyrIf you have a sec, rate or review us on Apple Podcasts, won't you? 

Mary Lasker used to say that more money was spent on advertising campaigns for gum than was spent on cancer research. She'd seen the effects of that almost non-existent budget first hand: she watched people close to her die from cancer, including her advertising exec husband. She was outraged by the lack of money and research devoted to ending the disease. But with her own funds and influence, Mary Lasker rallied the public and lawmakers to take notice, ultimately leading to The National Cancer Act of 1971. This "War on Cancer" brought millions of dollars, but also harsh truths: there was no simple cure for cancer, and the remedies of modern science to control the disease took a devastating toll on patients. Rose Kushner was one of those patients. She questioned the treatments and surgeries that had become the status quo for medical experts. Her pushback helped start a massive change in the patient-doctor relationship as well as in cancer treatment. In Episode 1, we learn how Mary Lasker and Rose Kushner became two of the most important health policy advocates of the 20th century, putting cancer—and cancer patients—front and center. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The gals are on the campaign trail, (fully vaccinated and ready to kiss some babies!) and they want YOU...to tell the dental hygienists and acupuncturists of the world to leave diagnosing cancer to the professionals, mmkay? Perhaps they need an inservice on medical trauma from us, the medically traumatized? Then, throw on your autumn sweaters for this listener letter: a cancer person contrasts the early days' “I can do this!” attitude with her current reality of treatment, statistics, and fear. Can we write some cancer (anti-)fan fiction to combat her doomy daydreams? You bet! In RATS, Stef just wants to talk about pastry. Pastry-based artificial intelligence, that is! Will it revolutionize cancer diagnostics? One cannoli hope! To learn more about the RATS in this episode, read this New Yorker articleRATS theme song by Jessica Boudreaux of Summer CannibalsTo buy music by Vyvyvyr, our theme song artist, visit their bandcamp!

The Chemo Chat Show - https://www.youtube.com/user/sarahmillsloveSarah's Instagram Handle - @sazzymills

Most people don't know that you're considered a cancer survivor at the moment of diagnosis. It wasn't always this way. Sixty years ago, a cancer diagnosis was a death sentence. And if you did survive, you were left to figure out the rest of your life on your own.But some survivors demanded something different, something better.From OffScrip Media, this is The Cancer Mavericks, a deep-dive narrative into the people who fought for better treatment, forced doctors to listen, and pushed America to see the human side of the disease. Episodes of this series will publish monthly through the end of December 2021 to commemorate the 50th anniversary of the signing of the National Cancer Act of 1971. For more information, visit https://cancermavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Have you heard the good news? Well you're about to, because Stef has some! Amy's got lumps of surgeon drama and needs more skin in the game. We answer the age-old question: why is my radiologist grunting like that? In an action-packed letter, a gal's gotta get back to chemo, but her best friend is lost in the woods and ends up in prison. RATS gets a glow up with a theme song by cancer slayer Jessica Boudreaux of Portland band Summer Cannibals. Risk of Fear Spiral: low, but content note: we honor a cancer person who recently passed away at the end of the RATS segment.To learn more about Dr. Carl June: https://www.tedmed.com/speakers/show?id=729447To learn more about ASCO's advance of the year: https://www.asco.org/about-asco/press-center/news-releases/asco-names-advance-year-molecular-profiling-drives-progress

Devon Ciampa, LMSW, and Megan Solinger, MHS, MA, OPN-CG, discuss coordination of care for adolescent and young adults (AYAs) with cancer and the specific barriers this population faces, including mortality awareness, learning independence, and how to navigate their cancer journey in this transitional age range.

Cancer always catches us off guard and throws wrenches in plans, but rarely are plans so deeply and quickly impacted as when one is already in the middle of a major life transition, as with today's guest, who was 14 weeks pregnant with her first child when she was diagnosed with inflammatory breast cancer. Alessandra joins us to share her experience navigating life as a pregnant cancer patient. We're so glad to have her here to speak about her pain, joy, fear, and excitement throughout this unique journey, and we're so excited to welcome her son Luca into the world!

Emily's Blog, Wonky Arm - https://wonkyarm.wordpress.com/Pink Pearl Canada - https://pinkpearlcanada.org/Young Adult Cancer Canada - https://www.youngadultcancer.ca/ 

In today's special episode of The Oncology Podcast, Rachael Babin chats with Ursula Sansom-Daly and Natalie Bradford about telehealth.They discuss research in this area, Ursula and Natalie's personal experiences and motivations for using telehealth in their practices, and what clinicians can do to make delivering care using telehealth more human. With our fresh reliance on telehealth in the era of COVID-19, this is a fantastic episode for all health care professionals.  For more information, bios and links, please visit our website.For podcast updates and for the latest oncology news, subscribe to The Oncology Newsletter for free here.The Oncology Podcast - An Australian Oncology Perspective

Adolescent and young adult (AYA) cancer patients face a unique set of challenges and hurdles during and after their cancer treatment. Samantha Hulett, a James social worker and the navigator of the hospital's growing AYA programs describes these challenges: Where to be treated, a children's or adult cancer hospital; sexual health and fertility issues; feelings of isolation from their peer group and depression.

One of the things that make young adult cancer so unique is that you can be diagnosed while pregnant, which is something that doesn't happen when you're 8 or 80. Joining us to discuss the trials and tribulations of facing a cancer diagnosis and treatment while pregnant are Amanda Albritton and Cassidy White.

Ariella Chivil is a self-described “patient turned oncology geek.” Ariella joins us to talk about being a champion for patient advocacy, and her work with leading organizations such as the Cancer Research Institute to share her immunotherapy success story. Survivor Spotlight on young adult cancer survivor Paul Berman.

Navigating your HR department can be tricky even when you don't have cancer. Young adult survivor of Hodgkin's Lymphoma, Jennifer Benz (CEO at Benz Communications) joins us to talk about communicating with Human Resources, understanding your benefits and rights – and making HR work for you. 

Mommy has cancer. Daddy has cancer. How do you talk to your kids? Sharing information about what's going on with your health on an age- appropriate level with your young children is incredibly important and can be overwhelmingly challenging. Jackie Woods (LMSW) joins us to discuss how to start conversations and answer questions about your cancer with the children in your life. Survivor Spotlight on young adult triple-negative breast cancer survivor Rachel Park.

Despite Marloe Esch's professional experience as an oncology nurse, navigating her own breast cancer diagnosis at 29 was mystifying and lonely. Marloe joins us to discuss the transition from nurse to patient, getting treated by co-workers, and how she is continually looking for ways to support survivors like her. Survivor spotlight on two-time cancer survivor and aspiring scientist Jay Gadsden.