Podcasts about bifida

Draw inspiration from Lori and learn to pass on God's courage and his valor through your example, as well through his Word. -------- Thank you for listening! Your support of Joni and Friends helps make this show possible.     Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org   Find more encouragement on Instagram, TikTok, Facebook, and YouTube.

In today's episode, Lois speaks with Ghofran Alyass about her life and how she navigated the educational system as a person with a disability living in Canada. Ghofran was born in Iraq at a time of war, when obtaining medical supplies and accurate medical advice was a challenge. Her parents managed to care for a child with spinal bifida for ten years, until she was able to travel to the USA for lifesaving surgery. In this conversation Ghofran discusses her early life, her experiences navigating the education system in Canada, her recent memoir and her current work running a not-for-profit called BeyondAbilities International Reach out to Ghofran and buy her book: BeyondAbilities International Website: http://www.beyondabilities.ca Ghofran e-mail: beyondabilities51@gmail.com Instagram: https://www.instagram.com/p/C3nIsr0oB5u/?utm_source=ig_web_copy_link Facebook: https://www.facebook.com/BeyondAbilitiesCanada?mibextid=ZbWKwL X/Twitter: https://x.com/AbilitiesBeyond?s=09 GoodReads: https://www.goodreads.com/author/show/45589891.Ghofran_Alyass Read Ghofran's memoir: Amazon: https://www.amazon.com/dp/B0CLF32B4B Bookshop: https://bookshop.org/wishlists/378c4096c9329957e182a9a7eca41b3283fb1647 Podcast Image description: A smiling woman who is sitting in a wheelchair. She is wearing a white hijab and a white long-sleeved shirt. Behind her is a tree with red and green leaves, with fallen red leaves on the ground. There is also a stone structure and greenery. I'd love to hear from you – contact me at Web: https://www.loisstrachan.com/ LinkedIn: www.linkedin.com/in/lstrachan Facebook: https://www.facebook.com/loisstrachanspeaker This episode edited by Craig Strachan using Hindenburg PRO – find out more on Hindenburg.com Credits and music by Charlie Dyasi of Naledi Media.

The guys talk some comedy, NFL Playoffs, WNBA and Royal Rumble Like Rate and Review on iTunes! Follow us @tencentbeerlife on all social media. Email the show at tencentbeerlife@gmail.com Sponsored By: Jenkins Insurance in Tallmadge Ohio/ Drop D Pics Music: Switchblade by Bundy and the Spins --- Send in a voice message: https://podcasters.spotify.com/pod/show/tencentbeerlife/message

A partir del 25 de noviembre el ingreso a la Línea 9 del STC Metro será únicamente con Tarjeta de Movilidad Integrada.Aumentó a 24 el número de muertos a consecuencia de las torrenciales lluvias en República Dominicana El 21 de noviembre es el Día internacional de la Espina Bífida, la segunda causa de discapacidad física en la infancia, después de la parálisis cerebral

In this episode, we review the high-yield topic of ⁠⁠Myelodysplasia (myelomeningocele, spinal bifida)⁠⁠⁠⁠⁠ ⁠⁠⁠⁠from the Knee & Sports section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Orthobullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on Social Media: Facebook: www.facebook.com/orthobullets Instagram: www.instagram.com/orthobulletsofficial Twitter: www.twitter.com/orthobullets LinkedIn: www.linkedin.com/company/27125689 YouTube: www.youtube.com/channel/UCMZSlD9OhkFG2t25oM14FvQ --- Send in a voice message: https://podcasters.spotify.com/pod/show/orthobullets/message

Psychological morbidity among adults with cerebral palsy and spina bifidaMark D Peterson, Paul Lin, Neil Kamdar, Elham Mahmoudi, Christina N Marsack-Topolewski, Heidi Haapala, Karin Muraszko, Edward A HurvitzPMID: 32713401DOI: 10.1017/S0033291720001981AbstractBackground: Very little is known about the risk of developing psychological morbidities among adults living with cerebral palsy (CP) or spina bifida (SB). The objective of this study was to compare the incidence of and adjusted hazards for psychological morbidities among adults with and without CP or SB.Methods: Privately insured beneficiaries were included if they had an International Classification of Diseases, Ninth revision, Clinical Modification diagnostic code for CP or SB (n = 15 302). Adults without CP or SB were also included (n = 1 935 480). Incidence estimates of common psychological morbidities were compared at 4-years of enrollment. Survival models were used to quantify unadjusted and adjusted hazard ratios for incident psychological morbidities.Results: Adults living with CP or SB had a higher 4-year incidence of any psychological morbidity (38.8% v. 24.2%) as compared to adults without CP or SB, and differences were to a clinically meaningful extent. Fully adjusted survival models demonstrated that adults with CP or SB had a greater hazard for any psychological morbidity [hazard ratio (HR): 1.60; 95% CI 1.55-1.65], and all but one psychological disorder (alcohol-related disorders), and ranged from HR: 1.32 (1.23, 1.42) for substance disorders, to HR: 4.12 (3.24, 5.25) for impulse control disorders.Conclusions: Adults with CP or SB have a significantly higher incidence of and risk for common psychological morbidities, as compared to adults without CP or SB. Efforts are needed to facilitate the development of improved clinical screening algorithms and early interventions to reduce the risk of disease onset/progression in these higher-risk populations.

In this episode, we review the high-yield topic of Myelodysplasia (myelomeningocele, spinal bifida) from the Pediatrics section. Follow Orthobullets on Social Media: Facebook: www.facebook.com/orthobullets Instagram: www.instagram.com/orthobulletsofficial Twitter: www.twitter.com/orthobullets LinkedIn: www.linkedin.com/company/27125689 YouTube: www.youtube.com/channel/UCMZSlD9OhkFG2t25oM14FvQ --- Send in a voice message: https://anchor.fm/orthobullets/message

On this episode we had the opportunity to chat with Amanda Kern, Mom of chance Kern, who has spina Bifida. Redefining Spina Bifida - www.redefiningspinabifida.org Redefining Spina Bifida Facebook - www.facebook.com/redefiningspinabifida Spina Bifida Association - https://www.spinabifidaassociation.org/ Amanda Kern Photography Facebook - www.facebook.com/amandakernphotography Super Chance - www.facebook.com/superchancekern Allison Lefebvre story shared on SBA's page (including Haiti story that relates to the popular Holland poem) – https://www.facebook.com/spina.bifida.learn/posts/10155598641067019 Allison Lefebvre - http://anupwardreckoning.com/ Something So Worth It (the org founded by Allison Lefebvre mentioned) - https://www.somethingsoworthit.org/ LINKS: Instagram- @Tulipsintuscany | Website- tulipsintuscany.com | Support Tulips & get awesome perks- Patreon | Tulips Merchandise- Shop | If you are interested in advertising with us on our podcast please fill out the contact form on our website. --- Support this podcast: https://anchor.fm/tulipsintuscany/support

In this week's episode I talk the medical condition known as spina Bifida and how the condition had made an effect on a woman while pregnant.

Tamara (Tami) basó los 18 años, más de lo previsto. Ahora tiene 23 años y se está convirtiendo en una de las mejores jugadoras de tenis de mesa del mundo. Ella nació con la espina bifida. Tami fue la primera jugadora de tenis de mesa Chilena en ganar oro en los Juegos Parapanamericanos, y es la primera jugadora de tenis de mesa chilena en clasificar para los Juegos Paralímpicos de Tokio. En este episodio, Tamara habla sobre su experiencia de tener la espina bífida y sus sueños para el futuro. Expertos incluidos: Paola Leonelli (la madre de Tami), Judy Thibadeau (Directora de Investigación y Servicios de la Asociación de Espina Bífida, y Ricardo Elizalde (el Presidente, Comité Paralímpico de Chile) La traducción de Judy es de Julisa Salas. Gracias a Gonzalo Jara para su ayuda tambien. Audio de: Team USA's Opening Ceremony, 2019 Parapan American Games YouTube page.

La historia de este doujin es simple, sencilla y para toda la familia. Un humilde trabajador va de copas con su jefa y acaba acostándose con ella. Simple, ¿verdad? Entonces te estarás preguntando: ¿qué tiene de especial este hentai? Pues creimos haberlo visto todo hasta que vimos la lengua de esta elfa.Recuerda que puedes apoyarnos con donaciones al Podcast / To support our Podcasts: https://bit.ly/BDAPodcastSupportSi deseas publicitar tu marca en nuestros episodios, escríbenos a: info@frikitimes.comSuscribete a nuestra playlist con las canciones favoritas que vamos descubriendo en cada episodio de nuestro podcast: https://bit.ly/BastardosPlaylist

Roshini Cope, a.k.a Glamazini, the Viral VLOGGER, Light & Laughter Creator, is having a conversation with the Pushy Broad From the Bronx! All of her fans get to see a side of her that is surprising and delightful!  If you didn't know her before, be prepared to love her now! A Must Listen!!!

In this episode, we review the high-yield topic of Myelodysplasia from the Pediatrics section. --- Send in a voice message: https://anchor.fm/orthobullets/message

This week's guest, Nicole Breadon, is running for State Representative of Michigan's 43rd District. She discusses taking care of her mother during a rough battle with Rheumatoid Arthritis and raising children with Spina Bifida and developmental disorders. Nicole also discusses her stance on a number of Michigan's issues, encouraging everyone everywhere to get out there and educate yourself on where your local politicians stand. Find out more on votenicolebreadon.com Facebook and Instagram: @FriendRequestPod Twitter: @FriendRequestJL

Paul Northridge had a Near Death Experience following a lethal reaction to a muscle relaxant whilst on the operating table at the age of 15. He remembers looking down on the medical staff as they tried to resuscitate him, before being met by 3 balls of light. He then experienced a life review, which has stayed with him ever since. You can find more about Paul at: Facebook - https://www.facebook.com/paulnorthridgeauthor Unite Planet on Youtube - https://www.youtube.com/channel/UCC3KACgvmbZViFIitdLajkg Find Paul’s book at: https://www.amazon.co.uk/Walk-Life-Ground-Paul-Northridge-ebook/dp/B07KFPKPY1 The artist that Paul refers to is Lloyd Canning (http://lloydcanningartworld.com/cosmic-art/) and the painting is The Eternal Spirit. This figure of a light being and it's almost identical to what Paul saw during his NDE (but three of them). For more information on Past Life Regressions, you can visit: https://www.newtoninstitute.org/about-tni/past-life-regression-lbl-process or https://paulaurand.com/near-death-experience. __________ To gain exclusive members-only benefits, such as access to our VIP members-only Facebook page and bonus content from some of our amazing guests, become a Let's Talk Near Death premium subscriber over on Patreon: https://www.patreon.com/kirstysalisbury

Dan McCoy joins Wheel Stories for episode 12. Dan who was born with spina bifida is a Paralympic Gold Medalist and A.C.E personal trainer. Dan shares his story of chasing an Olympic dream. He began playing sled hockey at the young age of four. By 8-years-old, he knew he wanted to be a Paralympian.  In 2014, Dan saw his dreams come true when he won the gold medal in Sochi, Russia as part of the United States Men’s Sled Hockey Team. Dan developed a passion for helping people reach their health and fitness goals following his Olympic Gold and became an A.C.E certified personal trainer. Dan resides in Pittsburg, Pennsylvania where he is an active advocate for the adaptive sports community. He is currently a member of the Pittsburgh Mighty Penguins Sled Hockey Senior team as well as the Director of Player Development for the Pittsburgh Mighty Penguins Sled Hockey Organization. Dan’s Wheelchair: Quickie / https://www.quickie-wheelchairs.com/ Making Dan’s Life Easier: Hands-Fee voice controls Connect with Dan: @danmccoyfitness on Instagram/Facebook/Twitter YouTube: Dan McCoy Connect with Wheel Stories: @wheelstoriespodcast on Facebook & Instagram

This podcast is about a man named Creg Richards. My husband and I met him while cruising about on our motorcycle, an 800 pound marvel of engineering called a Honda Gold Wing. In our travels, we came across an RV store which is now called Campers Inn in North Jacksonville, Florida, and were assigned a random sales rep who thoroughly covered the bases on RVs. Then the heat drove us out of the lot and into the office. And for some reason, we just kept talking.  We found out that Creg was born in Michigan to a single mother who put him up for adoption. As a newborn, he was chosen by a local family, however, it was about six months before they were able to take him home. What happened in the interim was a secret to Creg and his adopted family until decades later. Suddenly, a man who was defined by his athleticism, found out that he should have never been able to physically do what he’s done. And now, his everyday operating capacity is caught up in the ongoing debate regarding prescription opioid medication.  We had the good fortune of hearing Creg's story or, I should say, stories. Find out why Creg is a medical miracle on this episode of COMMON LUMINARIES.

ONCE UPON A GENE - EPISODE 011 Rollin' With Spina Bifida Joining me today is Whitney Stohr, a master advocate for her son and others in the community. There's a lot to learn from her family and a lot of good information in our conversation.  EPISODE HIGHLIGHTS Tell me about you son Malachi  He is almost 21 months old, adorable, the most social little guy you'll ever meet and he has Spina Bifida. Spina Bifida means that in-utero, very early in a pregnancy the spine of the baby doesn't form like it should. As a result, when the child is born, there's an open area on their spine. During the development later into the pregnancy, the nerves that go down the spine are open to the fluid inside of the placenta and to the air when they're born, causing damage to the nerves. It can cause numerous related disabilities, usually impairs mobility and often leads to Hydrocephalus, or water on the brain. Hydrocephalus is caused by the Arnold-Chiari malformation, which is where the spine is open to the air and it tugs the spinal column down, brings the brain down to the upper part of the neck and blocks the fluid that naturally occurs on the brain. This causes a buildup of fluid on the brain which requires surgery to place a device in the brain to help drain it.  When did you find out that Malachi had Spina Bifida? We got our diagnosis just after my second trimester ultrasound where everything looked great and my regular OB didn't see anything. I had the quad screening and that showed an open neuro tube defect which is what Spina Bifida is. They brought me back in and sent me to a specialty clinic to do a high resolution ultrasound. I went into research mode to find out everything I possibly could about the condition. I feel like I didn't miss a beat in trying to determine what the next steps were.  Tell me about Malachi being born. Malachi was born in January 2018 at 35 weeks. I was living in Yakima, about 2-3 hours away from Seattle. We were flown over by medical flight in the middle of the night and taken to the University of Washington Medical Center and rushed into the operating room for a c-section. They couldn't get the epidural to work, so they had to put me under. It was traumatic because I wasn't sure if I'd wake up and even have a baby. They put me to sleep, I woke up in my hospital room and my husband told me Malachi was fine, in the NICU and being prepared for a transfer. They wheeled him up in his incubator, I got to meet him for the first time, say hello and say goodbye and send him on his way. Malachi was taken to Seattle Children's Hospital and had surgery to close up his spine. For the first surgery, they brought in a couple teams to pull the muscle and skin and literally zip up his spine. If the spine isn't closed up soon enough, there's a risk of infection so the goal was to get him into surgery as soon as possible. He was born in the middle of the night at 12:38am and had the surgery mid-afternoon the same day. Malachi spent the first eight months in the hospital. He had five other surgeries in this time. He had spinal surgery on day one and brain surgery on day two to correct the Hydrocephalus. He was born with congenital heart defects, so he also had open heart surgery at two months old.  You're living in Yakima, so where are you staying and what are you doing for eight months? My husband had to go back to work, so he was living in Yakima and commuting, working Monday through Friday and then coming to Seattle on the weekends. When Malachi was in the NICU and I wasn't allowed to stay with him, we were at the Ronald McDonald House, which was a godsend. Once he was moved down to a room, I lived in the hospital with him. It was a long journey to bring Malachi home. After his heart surgery, he started having a lot of trouble breathing, so before he could go home we had a tracheotomy and he became ventilator dependent. Part of our going home plan involved weeks and weeks of training on how to keep him alive. We were terrified to bring him home. In August 2018, we brought Malachi home to Yakima for the first time and it really kicked in then just how challenging it would be to be outside the hospital, trying to live a somewhat normal life and how many obstacles there were. Since then, it's been a learning opportunity every day.  How do you get out of the house with Malachi and all his stuff and get to an appointment? Not very well. It's a mess. I follow all these other medical moms on Instagram and a lot of their kids have trachs and feeding tubes and I feel like they're my heroes and they're so much better at it than me. I feel like a hot mess all the time. Malachi has to have a giant stroller, which I call the magic school bus. It's a sit and stand stroller made for two kids, I put his ventilator on the bottom where a toddler would stand and strap it on with bungee cords. We put his oxygen tank on the bottom and we travel with a giant red emergency backpack that has all of his spare equipment in it. We also have all the regular baby stuff like diapers and food. We attach his feeding tube and cords to the stroller with a clamp to keep from rolling them over.  How is he thriving so far with his new therapist? Is he in a co-op with Birth to Three or is he still too young? No co-ops or group therapies yet. We are hoping to, but the challenge right now is that it's cold and flu season and we're nervous to have him around other people. We'll be going into isolation in November until April or May. Hopefully by spring we can get him in a playgroup through the therapy center with other kids with disabilities and we're looking forward to that.  Can you tell me a little bit about what you've learned about being an advocate for Malachi medically and in general? I'm such a loud mouth and always have been. I've never been afraid to tell people to stick it when they need to hear it. That probably suits me well in this case. It has been different because I don't have a medical background and there's been a huge learning curve and I'm still learning every day, but as medical parents we can be an advocate in two ways. We can be an advocate for our kid, which is a given. We can also use our experience and the knowledge we gain to be an advocate for the community and for all kids and all people with disabilities or medical diagnosis. The disabled community is considered the largest minority group in the US, so whether we have disabilities or not, if we're going to be advocates for anything we have to include advocacy for disabilities. Opening my mind to that world has shown me how much privilege I have to not have to be aware of the issues that affect the disability community. I didn't have to be worried about good sidewalks or accessible parking spaces or accessible restrooms because it didn't affect me. A big part of this advocacy has been educating myself on these vast issues that affect people and kids with disabilities. It's been a practice in humility for me because I've had to accept that I was naive to these issues, but as an advocate it was a kick in the pants. It's important for medical parents to use their voice and to get involved however they can. There are ways that every single one of us can get involved and because we have this unique experience, it's so important that we all do get involved.  Can you tell me about the new organization you are a member of now? It's called Parent Institute for Engagement (PIE) ran through Washington State, the same program that runs the early intervention services statewide. They wanted to get more parents engaged and they wanted to give them the skills they need to advocate. This is not just advocacy for your child, but advocacy for the community, focused on a broader level. It's a year long leadership program, with seven people in my cohort and we meet once a month alongside the state interagency coordinating committee, which are government appointed people and representatives from different agencies. They come together once a month to talk about improvements, problems or how to make recommendations to state agencies on areas that need to be addressed. We have our meetings and learn specific skills. Last month, we learned how to tell our story for an advocacy purpose. Then we attend the meeting with the SICC where we get to meet all of the representatives and hear about ongoing problems. PIE is a group of really dedicated parents who want to be active advocates in their community and it's so fantastic. Anyone can apply, so I encourage other parents who want to be advocates and who want to learn those skills to apply.  What are your advocacy goals over the next year? I want to get more involved. Before Malachi, I didn't know much about disability issues or even issues happening in our own state and there are a lot of issues. I hope that through the PIE program and through other ways I've gotten involved in the community because of Malachi, that I make connections and get involved in the programs and campaigns that these groups are leading. Hopefully I can add my voice to the masses and we can make some change.  How hasn't having Malachi changed you? How do you feel it's changed your entire family bringing someone like Malachi into the world? Having a kid like this, being in and out of the hospital, seeing how much these kids go through just so they can wake up every day with a gigantic smile on their face is really profound how it affects you. I think it affects everyone you share your story with, which is why we do share our story. It's made me more focused, more of a serious and driven person. It's made me incredibly passionate about causes that are close to my heart. For the rest of my family as well, we've become very involved in issues related to Malachi's conditions. We've become a lot more outspoken about issues affecting kids like Malachi or kids with any other condition. Overall, your sense of empathy grows.  CONNECT WITH WHITNEY Whitney Stohr on Facebook: https://www.facebook.com/whitney.stohrhendrickson Malichi’s Journey on Instagram: @rollin.w.spinabifida Instagram: #spinabifida #redefiningspinabifida #hydrocephalus LINKS AND RESOURCES MENTIONED Children's Village Yakima Washington State Early Intervention Parent Institute for Engagement (PIE) Spina Bifida Association TUNE INTO THE ONCE UPON A GENE PODCAST Spotify Apple Podcasts Stitcher Overcast CONNECT WITH EFFIE PARKS Website Twitter Instagram

Aaron Wheelz Fotheringham joins Wheel Stories for episode 7. Aaron is an extreme athlete who has changed how the world views wheelchairs. Aaron does outrageous stunts and incredible flips off mega ramps as part of the action sports tour Nitro Circus. Aaron is also the inspiration behind the Wheelie Chair by Hot Wheels. More than anything else, Aaron wants to make the wheelchair cool for the next generation. Aaron’s Wheelchair: WCMX Chair / https://www.boxwheelchairs.com/ Making Aaron’s Life Easier: https://www.fcausdriveability.com/ Connect with Aaron: Instagram @aaronwheelz / Facebook @aaronwheelz Aaron’s Website: https://www.aaronfotheringham.com/ Connect with Wheel Stories: @wheelstoriespodcast on Facebook & Instagram Follow Abby: Instagram @fightlikewyatt / Facebook @wyattsfightagainsttm Sponsor: http://www.getsaltybritches.com / WHEELSTORIES20 at checkout for 20% off your order

This week James and James take a gander at Mark Millar's Ultimate X-Men (2001) #1-6. Then, moving from one toxic cesspool into the next, they dive into Chuck Dixon's Team 7 (1994) #1-4. Looks like Craven sold us out again.

In this episode of Mom Spot, Kat has a conversation with Sam, who is living the RV life! Sam is a mother of a child who happens to have a disability. Sam shares about her families RV adventures as well as how she survived after finding out during her pregnancy that her child would have a disability.

In this episode, you're going to hear from an amazing man who has successfully overcome some of life's toughest obstacles. In my interview with Brian, you'll hear how obstacles like spina bifida, a wheel chair, and cocaine addictions haven't stopped him from polishing his life. Brian is truly an inspiration to everyone he meets.

Ruth Madeley has had phenomenal success in a relatively short acting career. She played lead role in BBC Drama 'Don't Take My Baby' that won the BAFTA for Best Drama and she was also nominated for Best Actress. Since then she has gone on to secure roles in Cold Feet, Years & Years and the US Drama The Rook. As well as having a very successful career in acting, Ruth is also a massive inspiration. Ruth was born with spina bifida and a spinal condition known as scoliosis and managed to get the BBC to create a documentary to help raise awareness called 'Spina Bifida and Me'. In this episode we talk about the reality of being a BAFTA nominated actress and why all is not quite what it seems', having a positive outlook on life and overcoming obstacles on a daily basis, advice to young and established actors and the medical advancements that are now available to pregnant ladies to operate on the featus of an unborn child with spina bifida while still in the womb! Please subscribe, download, rate and review our Podcast: iTunes - http://bit.ly/richinsuccess Soundcloud - https://soundcloud.com/user-124595234 Follow Ruth Madeley here: https://twitter.com/ruth_madeley https://www.instagram.com/ruthmadeley/?hl=en You can follow Rich In Success at: https://www.facebook.com/richinsucces... https://twitter.com/richinsuccess https://www.instagram.com/richinsuccess/ Rich In Success is a podcast hosted by cousins Matt Hall (actor/singer/multiple business owner) and Dan Ramsden (health & wellbeing coach). They are on a journey to define exactly what success is and how to implement this into your daily life. Each week they interview inspirational guests from all walks of life including successful sports people and famous actors to experts in health and millionaire business people. Are you ready to learn, grow and take your quality of life to the next level? Join them on their quest of self discovery and learn from the best.

Lots of people can make lemonade out of lemons, but a select few can make lemon meringue pie. Bree Reynolds was born with all of the qualifications for justified self-pity: poverty, divorced parents, and a birth defect... But that's just not her style. She's tough, tenacious, faith-filled, and very funny. Underestimate her at your peril!

La doctora Sara Uribe, directora de la fundación Mónica Uribe por amor, nos cuenta sobre esta enfermedad.

Dave Carl is a motivational speaker, author, blogger, and social worker. He was born with spina bifida, a condition where the spinal cord is not fully developed. Because of this, Dave is paralyzed from the waist down and has been in a wheel chair his entire life. He wrote the children's book, Super Cyclist. He has a bachelor's degree in Social Work and gives back to his community in huge ways. Dave is a certified ADA (American with Disabilities Act) Coordinator and he uses his knowledge to teach independent living classes to other physically and developmentally disabled adults. http://www.supercyclist.com/ http://shareindependentliving.blogspot.com

“I never thought of myself as someone who was different.” —Tatyana McFadden Tatyana McFadden is one of the most decorated athletes on the planet. She's a 17-time Paralympic medalist, and she has won 24 World Marathon Majors. In 2013 alone, she won the Boston, Chicago, London, and New York City marathons. In 2015, she shattered the New York City Marathon record by 7 minutes and 20 seconds. But Tatyana wasn't born into success — she was born in Russia with Spina Bifida, a disease that left her paralyzed from the waist down. She spent the first six years of her life in an orphanage, crawling on her hands because she didn't have access to a wheelchair. At six years old, everything changed: Tatyana was adopted by Deborah McFadden, who at the time was the Commissioner of Disabilities for the Bush administration and happened to be at the orphanage on a business trip. Tatyana moved to the United States, was introduced to sports as a way to get strong, and by 15 was competing at the Paralympics. In addition to her outstanding athletic accomplishments, Tatyana is an outspoken advocate for people living with disabilities, and later this spring she'll complete her master's degree in pursuit of a career as a child life specialist. Thank you to AfterShokz for sponsoring this episode of the Ali on the Run Show! CLICK HERE for $50 off your wireless headphone endurance bundle!   What you’ll get on this episode: Tatyana talks about her childhood and what it was like growing up with Spina Bifida in an orphanage in Russia and how she made her way to becoming a world-class athlete (2:55) Tatyana’s take on the word “disability” (10:50) What exactly is Spina Bifida? (13:35) What brought Tatyana’s mom to the orphanage in Russia (17:00) What it was like having a disability in high school, and how Tatyana went on to create an important law for high schools around the country — and then meet the Obamas and Ellen DeGeneres (19:00) How Tatyana became confident and outspoken (27:40) Why Tatyana decided to go all-in on the marathon, and what it’s like racing in a chair (30:30) What Tatyana’s training looks like before a goal race (38:30) What it means to be brave (41:00) What can people do to make life easier for people with disabilities? (44:30) Tatyana on insecurities, grad school, what she’s proudest of, and what’s next (47:40) What we mention on this episode: Kennedy Krieger Institute NormaTec Recovery Tatyana on The Ellen DeGeneres Show TCS New York City Marathon New York Road Runners Team For Kids Follow Tatyana: Instagram @tatyanamcfaddenusa Twitter @tatyanamcfadden Facebook Website Follow Ali: Instagram @aliontherun1 Facebook Twitter @aliontherun1 Blog Strava Listen & Subscribe: Apple Podcasts Spotify SoundCloud Overcast Stitcher Google Play SUPPORT the Ali on the Run Show! If you’re enjoying the show, please subscribe and leave a rating and review on Apple Podcasts. Spread the run love. And if you liked this episode, share it with your friends!

Spina bifida is a birth defect where there is incomplete closing of the backbone and membranes around the spinal cord. Mary Villenueve lives with a physical disability every day of her life, but what's more telling is people who interact with her a more concerned with their own biases towards people with PDs than actually trying to educate themselves on what a persons challenges are. Mary tells stories of complete strangers offering to help her out, but the types of help they are providing are more harmful than good. She also talks about her life growing up and being raised the same as her brothers, which played a big role in maintaining her confidence that she now shares, and she credits her parents big time for this. She also mentions her supportive husband, and my former guest Eric. V a time or two. Thank you to Mary. V for being candid and honest and educating about your disabilities, and how you turn them into different abilities.

After arriving at her 20 week ultrasound, Abigail, her husband and mother were anxiously awaiting to hear the news of their first child’s gender. However, the appointment took a turn when they learned that their son would be born with Spina Bifida. Abigail talks to us about that experience and their journey since that life changing moment. They’d come to learn that their son also had hearing loss and she talks about the challenges associated with it.   Abigail expresses her feelings about Teak’s diagnosis, talks about the incredible six (AND A HALF) year-old boy that he has become, and gives great advice to parents facing similar challenges. You can follow along and connect with Abigail through her blog, www.theheadhouseatx.com.   She recommends connecting with a Spina Bifida group on Facebook, she specifically has benefited from meeting other parents here. She also spent a lot of time on BabyCenter's Spina Bifida group when Teak was born.  Abigail also recommends the following resources: www.hearingloss.org https://www.livebinders.com/play/play?id=1666786 (This is the Texas Regional Day School for the Deaf and Hard of Hearing programs that Abigail referenced in her interview)  If you would like to connect with Abigail, you can find her on Instagram or Facebook. She also blogs here and at Austin Moms Blog. 

イラスト画像を見る Illustration by サギリ Music by shunichi suwa 楽曲名 : Utricularia bifida ”[otogi-015] 植物図鑑Ｉ” へ移動 小さい頃、図鑑に...

Today we're doing something a little different. Betty's been sick and I didn't want to wait yet another week to put a new episode out, so instead I'm sharing a few uncut chunks of my chat with Mary Evelyn Smith that didn't make it into her story in episode #17. I had such a great time chatting with Mary Evelyn and found her so relatable. I think you'll really enjoy this unedited discussion on a few different topics. To sum it up, we chat about: The new (intense) forms of mom guilt that show up when your child's early childhood involves a lot of therapy (or maybe Mary Evelyn and I are just both really good at beating ourselves up?) How to ruin any fun/relaxing/enjoyable activity The terrible selection of children's books about disability and differences How to approach and teach your child about disabilities The connections that our kids (and their siblings) are not making about the world The responsibility we have as parents in shaping how our kids will be viewed and treated If you haven't had a chance, visit Mary Evelyn's blog, where she chronicles her family's beautiful (but real) life. -- Today's episode is sponsored by ezpz. The silicone ezpz Happy Mat has been a game changer for our family! It means Betty can eat at the table with us - without flinging a plate or tipping a bowl. Use the promo code BETTY at checkout to save 20% on your ezpz order today!

Mary Evelyn Smith tells the story of becoming a mother to her son Simeon, who has spina bifida, and daughter Franny, who does not have a disability. She explains why constant attention can be exhausting, and how parenting a child with special needs can make you feel like you've got a big secret.

Nicole Cuda and Isabella Cuda, joins Mark this week. Isabella Cuda is a child actress and her mother Nicole Cuda has walked through alot with her daughters health since birth. Born with Spinal Bifida and a tethered spinal cord, actress Isabella Cuda was never supposed to be able to walk. After Dr. Ben Carson performed two major spinal cord surgeries on her, she was completely healed. Late-Night-Health-Nicole-CudaNicole talks with us about how she coped with the diagnosis and surgeries. This is the real life health story behind Eternal Salvation, in which Isabella plays Megan. It debuted in March 2016. Jonathan Wright (Bradley Snedeker) has it all, a prestigious job, incredibly beautiful wife, Amy (Jessica Morris), gorgeous 7-year-old daughter, Megan (Isabella), and countless friends. Having recently been appointed to Sr. Vice President of business relations for a well-established investment banking firm, Jonathan believes he is on the fast-track to reaching the apex of his career. He and his team have been assigned a new client’s billion dollar account. In the prime of his life, Jonathan suffers a life threatening brain aneurysm that leaves him comatose. After regaining consciousness, he begins the grueling task of rebuilding his life.

Nicole Cuda and Isabella Cuda, joins Mark this week. Isabella Cuda is a child actress and her mother Nicole Cuda has walked through alot with her daughters health since birth. Born with Spinal Bifida and a tethered spinal cord, actress Isabella Cuda was never supposed to be able to walk. After Dr. Ben Carson performed two major spinal cord surgeries on her, she was completely healed. Late-Night-Health-Nicole-CudaNicole talks with us about how she coped with the diagnosis and surgeries. This is the real life health story behind Eternal Salvation, in which Isabella plays Megan. It debuted in March 2016. Jonathan Wright (Bradley Snedeker) has it all, a prestigious job, incredibly beautiful wife, Amy (Jessica Morris), gorgeous 7-year-old daughter, Megan (Isabella), and countless friends. Having recently been appointed to Sr. Vice President of business relations for a well-established investment banking firm, Jonathan believes he is on the fast-track to reaching the apex of his career. He and his team have been assigned a new client’s billion dollar account. In the prime of his life, Jonathan suffers a life threatening brain aneurysm that leaves him comatose. After regaining consciousness, he begins the grueling task of rebuilding his life.

Nicole Cuda and Isabella Cuda, joins Mark this week. Isabella Cuda is a child actress and her mother Nicole Cuda has walked through alot with her daughters health since birth. Born with Spinal Bifida and a tethered spinal cord, actress Isabella Cuda was never supposed to be able to walk. After Dr. Ben Carson performed two major spinal cord surgeries on her, she was completely healed.Late-Night-Health-Nicole-CudaNicole talks with us about how she coped with the diagnosis and surgeries. This is the real life health story behind Eternal Salvation, in which Isabella plays Megan. It debuted in March 2016. Jonathan Wright (Bradley Snedeker) has it all, a prestigious job, incredibly beautiful wife, Amy (Jessica Morris), gorgeous 7-year-old daughter, Megan (Isabella), and countless friends. Having recently been appointed to Sr. Vice President of business relations for a well-established investment banking firm, Jonathan believes he is on the fast-track to reaching the apex of his career. He and his team have been assigned a new client’s billion dollar account.In the prime of his life, Jonathan suffers a life threatening brain aneurysm that leaves him comatose. After regaining consciousness, he begins the grueling task of rebuilding his life.

Nicole Cuda and Isabella Cuda, joins Mark this week. Isabella Cuda is a child actress and her mother Nicole Cuda has walked through alot with her daughters health since birth. Born with Spinal Bifida and a tethered spinal cord, actress Isabella Cuda was never supposed to be able to walk. After Dr. Ben Carson performed two major spinal cord surgeries on her, she was completely healed.Late-Night-Health-Nicole-CudaNicole talks with us about how she coped with the diagnosis and surgeries. This is the real life health story behind Eternal Salvation, in which Isabella plays Megan. It debuted in March 2016. Jonathan Wright (Bradley Snedeker) has it all, a prestigious job, incredibly beautiful wife, Amy (Jessica Morris), gorgeous 7-year-old daughter, Megan (Isabella), and countless friends. Having recently been appointed to Sr. Vice President of business relations for a well-established investment banking firm, Jonathan believes he is on the fast-track to reaching the apex of his career. He and his team have been assigned a new client’s billion dollar account.In the prime of his life, Jonathan suffers a life threatening brain aneurysm that leaves him comatose. After regaining consciousness, he begins the grueling task of rebuilding his life.

Isabella Cuda actress in Eternal Salvation born with Spinal Bifida. Isabella Cuda is 10 year old actor who is featured in the Christian film "Eternal Salvation". Born with Spina Bifida, Isabella's parents were told that their daughter would never walk. After surgeries by Presidential candidate Dr. Ben Carson, Isabella not only walks, she dances and plays golf as a member of the Junior PGA. She visits with Mark about her life on stage, Television and Film, while thanking Dr. Carson and God for helping her have a healthy life.

Isabella Cuda actress in Eternal Salvation born with Spinal Bifida. Isabella Cuda is 10 year old actor who is featured in the Christian film "Eternal Salvation". Born with Spina Bifida, Isabella's parents were told that their daughter would never walk. After surgeries by Presidential candidate Dr. Ben Carson, Isabella not only walks, she dances and plays golf as a member of the Junior PGA. She visits with Mark about her life on stage, Television and Film, while thanking Dr. Carson and God for helping her have a healthy life.

Isabella Cuda actress in Eternal Salvation born with Spinal Bifida. Isabella Cuda is 10 year old actor who is featured in the Christian film "Eternal Salvation". Born with Spina Bifida, Isabella's parents were told that their daughter would never walk. After surgeries by Presidential candidate Dr. Ben Carson, Isabella not only walks, she dances and plays golf as a member of the Junior PGA. She visits with Mark about her life on stage, Television and Film, while thanking Dr. Carson and God for helping her have a healthy life.

Isabella Cuda actress in Eternal Salvation born with Spinal Bifida. Isabella Cuda is 10 year old actor who is featured in the Christian film "Eternal Salvation". Born with Spina Bifida, Isabella's parents were told that their daughter would never walk. After surgeries by Presidential candidate Dr. Ben Carson, Isabella not only walks, she dances and plays golf as a member of the Junior PGA. She visits with Mark about her life on stage, Television and Film, while thanking Dr. Carson and God for helping her have a healthy life.

Cami talks about her son Calvin who was diagnosed prenatally with spina-bifida. At 25 weeks gestation, a fetal surgery was performed to close Calvin's back. Cami discusses her hopes and fears as a mom, some of the awkward and wonderful conversations she's had with strangers, and the common ground she finds with other parents facing all kinds of challenges with their kids.   Photos and notes can be found at http://www.bringingupbetty.com/6

On this episode of "HASH IT OUT WITH JANE" you will hear my super fun interview with Bethany A. Hoppe! First, we gossip about our beloved gal pals we have in common who have also been on "HASH IT OUT WITH JANE," Teal Sherer and Mary Verdi-Fletcher. Then, Bethany will teach us about 'wheelchair bling' and Molly B. Golly! Bethany is an excellent roll model (no pun intended) for women of all abilities.

Although he acquired a disability in his adult life, in addition to the one he was born with, Robert Bennett never ceases to be inspired by the world around him.

Pediatric Grand Rounds with Jodi Wenger, MD

For more information on Blessed Herman or the other saints and beati celebrated on 25 September, check these links Blessed Herman the Cripple 25 September on the Calendar of Saints For great Catholic audio, check out SQPN - Leading the Way in Catholic New Media Background music by Briareus.