Abnormal increase in cerebrospinal fluid in the ventricles of the brain
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Billy Joel recently announced that he has been diagnosed with normal pressure hydrocephalus, or NPH.
Dr. Galati starts the program wishing everybody a Happy Memorial Day and to be thankful for those who sacrificed so much for our freedom. He also gives you his thoughts on prostate cancer and screening recommendations after Joe Biden's diagnosis last weekend. We also got news about Billy Joel having hydrocephalus, so Dr. Galati speaks to that as well. He ends by talking about the controversy of food and obesity.
Moderator: Marian Galovic (Zurich, Switzerland)Guest: Per Kristian Eide (Oslo, Norway)In this episode, moderator Marian Galovich and guest Per Kristian Eide delve into the often overlooked but highly treatable condition of normal pressure hydrocephalus (NPH). Together, they explore the key clinical features of NPH, including its characteristic triad of symptoms, how to differentiate it from other neurodegenerative disorders, and the latest advancements in diagnostic approaches and surgical treatment options such as shunt placement.eanCampus access for Associate Members: If you are a member of a National Neurological Society in Europe, you are most likely already an Associate Member of the EAN and have an account for the eanCampus. If you have provided your email address to your National Neurological Society, it should already be in our database. Here is how you can access the eanCampus as an Associate Member:Enter the eanCampusClick on the Log In ButtonLog in with your MyEAN credentials and make use of the ‘forgot password'-functionality if necessaryIf you have trouble logging in, please get in contact with our Membership department (membership@ean.org) to cross-check if you are listed as an Associate Member to get access to eanCampus.
Your Hope-Filled Perspective with Dr. Michelle Bengtson podcast
Episode Summary: Mothers of children with special needs experience a wide range of emotions: fear, disappointment, guilt, grief, despair. They have a yearning for relief but often feel isolated and inadequate as they look at the parenting experience of others. As you pour your energy and resources into raising a special needs child, it’s easy to struggle with feelings of isolation, competition, and overwhelm. For the special needs mom who yearns for community and support on what can be a lonely road, my guest, Carrie Holt, wants to remind you that you are not alone, your best IS good enough, and even on the hard days, there are blessings to be had. In honor of Developmental Disabilities Awareness Month, we’re sharing how to find hope and flourish when parenting a special needs child. Quotables from the episode: I have seen how families lose hope, feel strung out, and all alone living this life of being in and out of the hospital. From the time my son was around 20 months of age, I began volunteering at our local children’s hospital and have been passionate about encouraging others ever since. I was joyfully expecting our third child when at a 20 week ultrasound, our doctor told us something was wrong with the baby. We learned he had Myelomeningocele (Spina Bifida) and Hydrocephalus and would require two life-saving surgeries the first day of his life, with one following a few days later. I read a lot about his condition, grieved, and then planned – trying to control everything. It wasn’t until the last few years, that I have truly grieved that, and have been learning to live in the tension of lament. My son ended up being admitted for 64 days, 30 of those in the PICU. He came home with a trach, ventilator, and g-tube with 16 hours a day/7 days a week of home nursing care. He’s been in and out of the hospital repeatedly and to date has had 64 surgeries. The life of parenting a special needs child is continual, so we are all learning to live in the tension of our kids not being healed and how God is with us in all of this. I’m learning that it’s okay to feel disappointed, to lament that to God, and grieve the hard moments of realizing that my son isn’t going to be like other kids. I’m also trying to help him navigate life’s hard questions: “Why did God allow this? Why didn’t he heal me?” His complex emotions, doubts, and anger over being in a wheelchair has been really hard for us. Do not be afraid of grief. Sometimes we feel like it’s going to drown us, but it’s so important to take our messy emotions to God. It’s okay to take our messy emotions to God – even anger, doubt, and fear, but it’s actually essential to our relationship with God and how He meets us there. Emotions aren’t something we get over, they continually come up again and again, but we’ve learned some strategies to deal with them. Gratefulness, getting quiet, and lament are just a few. I think for me personally, it is learning to take this one day at a time, crying out in the pain when it’s there, and then also remembering that God is in control. It’s also just looking for the little gifts of hope and joy that he gives us on a daily basis. Probably the biggest thing has just been his presence and knowing him in a way that I had not known him if I wasn’t in this. As difficult as pain and suffering is, God has showed me his character and his presence and sometimes it's just that perspective shift of Lord show me you, instead of my eyes being on my pain and my suffering, show me how you've prepared me for this, show me your character, show me your glory, show me your comfort. Jesus wants to be present in your pain. Scripture References: Psalm 40:1-3 ESV I waited patiently for the LORD; he inclined to me and heard my cry. He drew me up from the pit of destruction, out of the miry bog, and set my feet upon a rock, making my steps secure. He put a new song in my mouth, a song of praise to our God. Many will see and fear, and put their trust in the LORD. Lamentations 3:21-26, ESV But this I call to mind, and therefore I have hope: The steadfast love of the LORD never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness. “The LORD is my portion,” says my soul, “therefore I will hope in him.” The LORD is good to those who wait for him, to the soul who seeks him. It is good that one should wait quietly for the salvation of the LORD. Recommended Resources: The Other Side of Special, Navigating the Messy, Emotional, Joy-Filled Life of a Special Needs Mom by Amy J. Brown, Sara Clime, and Carrie M. Holt Sacred Scars: Resting in God’s Promise That Your Past Is Not Wasted by Dr. Michelle Bengtson The Hem of His Garment: Reaching Out To God When Pain Overwhelms by Dr. Michelle Bengtson, winner AWSA 2024 Golden Scroll Christian Living Book of the Year and the 2024 Christian Literary Awards Reader’s Choice Award in the Christian Living and Non-Fiction categories YouVersion 5-Day Devotional Reaching Out To God When Pain Overwhelms Today is Going to be a Good Day: 90 Promises from God to Start Your Day Off Right by Dr. Michelle Bengtson, AWSA Member of the Year, winner of the AWSA 2023 Inspirational Gift Book of the Year Award, the 2024 Christian Literary Awards Reader’s Choice Award in the Devotional category, the 2023 Christian Literary Awards Reader’s Choice Award in four categories, and the Christian Literary Awards Henri Award for Devotionals YouVersion Devotional, Today is Going to be a Good Day version 1 YouVersion Devotional, Today is Going to be a Good Day version 2 Revive & Thrive Women’s Online Conference Revive & Thrive Summit 2 Trusting God through Cancer Summit 1 Trusting God through Cancer Summit 2 Breaking Anxiety’s Grip: How to Reclaim the Peace God Promises by Dr. Michelle Bengtson, winner of the AWSA 2020 Best Christian Living Book First Place, the first place winner for the Best Christian Living Book, the 2020 Carolina Christian Writer’s Conference Contest winner for nonfiction, and winner of the 2021 Christian Literary Award’s Reader’s Choice Award in all four categories for which it was nominated (Non-Fiction Victorious Living, Christian Living Day By Day, Inspirational Breaking Free and Testimonial Justified by Grace categories.) YouVersion Bible Reading Plan for Breaking Anxiety’s Grip Breaking Anxiety’s Grip Free Study Guide Free PDF Resource: How to Fight Fearful/Anxious Thoughts and Win Hope Prevails: Insights from a Doctor’s Personal Journey Through Depression by Dr. Michelle Bengtson, winner of the Christian Literary Award Henri and Reader’s Choice Award Hope Prevails Bible Study by Dr. Michelle Bengtson, winner of the Christian Literary Award Reader’s Choice Award Free Webinar: Help for When You’re Feeling Blue Social Media Links for Host and Guest: Connect with Carrie Holt: Website / Carrie Instagram / Special Moms Instagram / Carrie Facebook / Podcast & Book For more hope, stay connected with Dr. Bengtson at: Order Book Sacred Scars / Order Book The Hem of His Garment / Order Book Today is Going to be a Good Day / Order Book Breaking Anxiety’s Grip / Order Book Hope Prevails / Website / Blog / Facebook / Twitter (@DrMBengtson) / LinkedIn / Instagram / Pinterest / YouTube / Podcast on Apple Guest: Carrie M. Holt is the co-host of the Take Heart Special Moms Podcast, an author and speaker whose passion is to encourage women to flourish in the unexpected. Through her testimony of raising and homeschooling four children, including her son, with medical, mental, and physical disabilities, her desire is for women and mothers to experience the hope we have in trials through the steadfast love of Christ. Her recent book, "The Other Side of Special: Navigating the Messy, Emotional, Joy-Filled Life of a Special Needs Mom," was released May 9th through Revell Publishing. She spent twelve years speaking and advocating through volunteer groups such as Family as Faculty and the Family Advisory Council at Nationwide Children's Hospital, a press conference in Washington D.C., several hospital fundraisers, and an event featuring former Ohio Governor John Kasich. She has also been a guest on various radio shows, including KNEO Author's Corner, Family Life Radio, and Moody Radio, and has spoken for women's events in churches, conferences, and smaller homeschool groups. Hosted By: Dr. Michelle Bengtson Audio Technical Support: Bryce Bengtson Discover more Christian podcasts at lifeaudio.com and inquire about advertising opportunities at lifeaudio.com/contact-us.
Julia, a 26-year-old with T1D, Hydrocephalus, ADHD, Autism, and OCD, discusses life, insulin management, job struggles, and her alert dog. Free Juicebox Community (non Facebook) JUICE CRUISE 2025 Blue Circle Health Eversense CGM Learn about the Medtronic Champions Try delicious AG1 - Drink AG1.com/Juicebox I Have Vision Use code JUICEBOX to save 40% at Cozy Earth CONTOUR NextGen smart meter and CONTOUR DIABETES app Learn about the Dexcom G6 and G7 CGM Go tubeless with Omnipod 5 or Omnipod DASH * Get your supplies from US MED or call 888-721-1514 Learn about Touched By Type 1 Take the T1DExchange survey *The Pod has an IP28 rating for up to 25 feet for 60 minutes. The Omnipod 5 Controller is not waterproof. How to listen, disclaimer and more Apple Podcasts> Subscribe to the podcast today! The podcast is available on Spotify, Google Play, iHeartRadio, Radio Public, Amazon Music and all Android devices The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here or buy me a coffee. Thank you! Disclaimer - Nothing you hear on the Juicebox Podcast or read on Arden's Day is intended as medical advice. You should always consult a physician before making changes to your health plan. If the podcast has helped you to live better with type 1 please tell someone else how to find the show and consider leaving a rating and review on Apple Podcasts. Thank you! The Juicebox Podcast is not a charitable organization.
Syncope Hydrocephalus Coma Final Step type Questions What key symptom differentiates syncope from seizure? What triad is seen in normal pressure hydrocephalus? At what Glasgow Coma Scale (GCS) score is intubation typically required? What is the first-line treatment for increased intracranial pressure in hydrocephalus? What pupil finding suggests opioid toxicity? What test is used to […] The post 126b: Syncope, Hydrocephalus, Coma PANCE Questions appeared first on Physician Assistant Exam Review.
In this heartfelt episode, we sit down with Jasmine Hicks, a devoted mom from Houston, Texas, who shares her powerful story of raising her 8-year-old son, Wesley. Wesley is a true warrior, navigating life with Autism, Epilepsy, Hydrocephalus, ADHD, and Cerebral Palsy. Jasmine's journey is a testament to the strength and resilience it takes to parent a child with special needs. What to Expect: -Jasmine recounts her journey into motherhood, which took an unexpected turn when her water broke at 21 weeks, leading to two months of hospitalization and complete bed rest. -The emotional rollercoaster of welcoming Wesley prematurely and the challenges that followed. -The impact of masking emotions, pretending to be happy outwardly while struggling internally—a reality many parents can relate to. -Jasmine's candid reflection on how her mixed emotions shaped her perspective on motherhood and family. Tune in to hear Jasmine's incredible journey and her advice for navigating life with love, patience, and strength. Connect with Jasmine: Learn more about the Non-Profit Organization "Win All Else Fails" by heading over to www.winallelsefails.org Follow her journey on Instagram: https://www.instagram.com/hickschronicles/ Connect with us and share your thoughts on this episode! Don't forget to subscribe and stay tuned for more empowering stories like Jasmine's. Follow Us: Instagram: https://www.instagram.com/theabmpodcast/ Facebook: https://www.facebook.com/profile.php?id=100095054651586
Today we look at strange letters, signs that you are being gang stalked, and we go on the hunt for the cryptids known as Melon Heads! People get stalked. Trevor Silverwood, for example, received mysterious letters for years. The real question is: are YOU being gang stalked! And then we take a look at the legend of the Melon Heads. Who are the creatures of the night who seek out our tasty flesh? Find out today on Dead Rabbit Radio! Patreon https://www.patreon.com/user?u=18482113 PayPal Donation Link https://tinyurl.com/mrxe36ph MERCH STORE!!! https://tinyurl.com/y8zam4o2 Amazon Wish List https://www.amazon.com/hz/wishlist/ls/28CIOGSFRUXAD?ref_=wl_share Help Promote Dead Rabbit! Dual Flyer https://i.imgur.com/OhuoI2v.jpg "As Above" Flyer https://i.imgur.com/yobMtUp.jpg “Alien Flyer” By TVP VT U https://imgur.com/gallery/aPN1Fnw “QR Code Flyer” by Finn https://imgur.com/a/aYYUMAh Links: Trevor Silverwood and the phantom writer https://www.unexplained-mysteries.com/forum/topic/181722-trevor-silverwood-and-the-phantom-writer/ Strange Letters https://forums.forteana.org/index.php?threads/strange-letters.9294/ How do you know if you're being gang stalked? https://www.quora.com/How-do-you-know-if-you-re-being-gang-stalked Crazy Woman Thinks Mailman Is Stalking Her https://www.youtube.com/watch?v=dOCyzG4BktQ Melon heads https://en.wikipedia.org/wiki/Melon_heads Hydrocephalus https://en.wikipedia.org/wiki/Hydrocephalus Dorr E. Felt Mansion https://en.wikipedia.org/wiki/Dorr_E._Felt_Mansion Melonheads Creep Through the Ohio Woods at Night http://www.weirdus.com/states/ohio/fabled_people_and_places/melonheads/index.php Owyhee Mountain Dwarves https://www.hauntedplaces.org/item/owyhee-mountain-dwarves/ ------------------------------------------------ Logo Art By Ash Black Opening Song: "Atlantis Attacks" Closing Song: "Bella Royale" Music By Simple Rabbitron 3000 created by Eerbud Thanks to Chris K, Founder Of The Golden Rabbit Brigade Dead Rabbit Archivist Some Weirdo On Twitter AKA Jack YouTube Champ Stewart Meatball The Haunted Mic Arm provided by Chyme Chili Discord Mods: Mason Forever Fluffle: Cantillions, Samson Foreign Correspondent: Fabio Nerbon http://www.DeadRabbit.com Email: DeadRabbitRadio@gmail.com Facebook: www.Facebook.com/DeadRabbitRadio TikTok: https://www.tiktok.com/@deadrabbitradio Dead Rabbit Radio Subreddit: https://www.reddit.com/r/DeadRabbitRadio/ Paranormal News Subreddit: https://www.reddit.com/r/ParanormalNews/ Mailing Address Jason Carpenter PO Box 1363 Hood River, OR 97031 Paranormal, Conspiracy, and True Crime news as it happens! Jason Carpenter breaks the stories they'll be talking about tomorrow, assuming the world doesn't end today. All Contents Of This Podcast Copyright Jason Carpenter 2018 - 2025
Syncope, Hydrocephalus, and Coma Syncope Transient loss of consciousness due to global cerebral hypoperfusion, often with rapid onset, brief duration, and spontaneous recovery A key differential in cerebrovascular cases, distinct from stroke, TIA, and seizures Clinical Presentation Preceding Symptoms: Dizziness, lightheadedness, nausea, pallor, diaphoresis Triggers: Prolonged standing, vasovagal (emotional stress) Orthostatic hypotension (sudden positional changes) […] The post 126 Syncope, Coma & Master Class Tonight! appeared first on Physician Assistant Exam Review.
What if you could recognize early signs of health deterioration before it turns into a crisis? Join us in a conversation with the inspiring couple, Jeff and Catherine Pearson, as they share their remarkable journey navigating life with hydrocephalus. Jeff, who has managed this condition since birth, and Catherine, his devoted caregiver, reveal their story of resilience through multiple surgeries and health challenges. Learn how their nonprofit, Hydro With Hope, and their online initiative, Invisible Condition University, provide vital resources and support for those affected by invisible conditions.Our discussion takes a deep dive into understanding the critical importance of proactive healthcare and the emotional and financial toll of unexpected medical emergencies. We explore Jeff's experience with sudden brain surgery and the lessons learned about listening to your body and recognizing symptoms early. Catherine shares her invaluable insights as a caregiver, emphasizing the importance of a supportive network. Through personal anecdotes, she illustrates the nuances of differentiating between various types of discomfort and the significance of addressing both physical and emotional needs.We also explore the Pearsons' passion for fostering community and collaboration in healthcare. By integrating Western and alternative medicine, they advocate for a cooperative approach to care. Their creation of "My Hydro Warrior Story" serves as a testament to the power of storytelling and shared experiences in building a strong support system. Their dedication to empowering families with chronic conditions shines through as they share strategies for balancing family life while navigating the complexities of healthcare. Get ready to be inspired by their unwavering commitment to making a difference in the world of invisible conditions.To watch our TV show Invisible Condition:https://watch.e360tv.com/content/sc_29490_16217Invisible Condition broadcasts LIVE every TUESDAY & FRIDAY at 10:00an MT and is available on demandon FB & YouTube immediately after the LIVE broadcast has concluded. Available on the e360tv siteabout a day later.Watch Invisible Condition LIVE on Facebook:https://www.facebook.com/profile.php?id=100091481468419You can watch the show here and chat with us LIVE during the show)Watch Invisible Condition LIVE on YouTube:https://www.youtube.com/@InvisibleCondition/streamsTo be considered as a guest for Invisible Condition, schedule a short discovery call with Jeff:https://api.totalallinonesolutions.com/widget/bookings/invisibleconditiontvTo join our growing community at Invisible Condition University:www.MyFreeGiftFromJeff.comSend us a text Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way. Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/
In this episode, host Ken Vinacco talks to guest Kristina Vaughn to discuss the role of physical therapists working with individuals with normal pressure hydrocephalus (NPH). NPH is a condition that leads to excess accumulation of cerebrospinal fluid in ventricles of the brain. This can lead to gait abnormalities, cognitive changes, and urinary incontinence. Ken and Kristina discuss how to differentiate from other neurologic diagnoses and what PTs can do to in the clinic or as a member of a multi-disciplinary NPH clinic team. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact neuroddsig@gmail.com. Show notes available: https://app.box.com/s/zzlyovhljhzm6qscq11lrfbp9v8z40ev
In this episode, we discuss the case of a 15-year-old girl who presents with progressive headache, nausea, vomiting, and difficulty ambulating. Her condition rapidly evolves into altered mental status and severe hydrocephalus, leading to a compelling discussion about the evaluation, diagnosis, and management of hydrocephalus in pediatric patients.We break down the case into key elements:A comprehensive look at acute hydrocephalus, including its pathophysiology and causesEpidemiological insights, clinical presentation, and diagnostic approachesManagement strategies, including temporary and permanent CSF diversion techniquesA review of complications related to shunts and endoscopic third ventriculostomyKey Case Highlights:Patient Presentation:A 15-year-old girl with a 3-day history of worsening headaches, nausea, vomiting, and difficulty walkingAltered mental status and bradycardia upon PICU admissionCT scan revealed severe hydrocephalus without a clear mass lesionManagement Steps in the PICU:Hypertonic saline bolus improved her mental status and pupillary reactionsNeurosurgery consultation recommended MRI and close neuro checksInitial management included dexamethasone, keeping the patient NPO, and hourly neuro assessmentsDifferential Diagnosis:Obstructive (non-communicating) vs. non-obstructive (communicating) hydrocephalusConsideration of alternative diagnoses like intracranial hemorrhage and idiopathic intracranial hypertensionEpisode Learning Points:Hydrocephalus Overview:Abnormal CSF buildup in the ventricles leading to increased intracranial pressure (ICP)Key distinctions between obstructive and non-obstructive typesEpidemiology and Risk Factors:Congenital causes include genetic syndromes, neural tube defects, and Chiari malformationsAcquired causes: post-hemorrhagic hydrocephalus (e.g., from IVH in preemies), infections like TB meningitis, and brain tumorsClinical Presentation:Infants: Bulging fontanelles, sunsetting eyes, irritabilityOlder children: Headaches, vomiting, papilledema, and gait disturbancesManagement Framework:Temporary CSF diversion via external ventricular drains (EVD) or lumbar cathetersPermanent interventions include VP shunts and endoscopic third ventriculostomy (ETV)Complications of Shunts and ETV:Shunt infections, malfunctions, over-drainage, and migrationETV-specific risks, including delayed failure years post-procedureClinical Pearl:Communicating hydrocephalus involves symmetric ventricular enlargement and is often linked to inflammatory or post-treatment changes affecting CSF reabsorption.Hosts' Takeaway Points:Dr. Pradip Kamat emphasizes the importance of timely recognition and intervention in hydrocephalus to prevent complications like brain herniation.Dr. Rahul Damania highlights the need for meticulous neurological checks in PICU patients and an individualized approach to treatment.Resources Mentioned:Hydrocephalus Clinical Research Network guidelines.Recent studies on ETV outcomes in pediatric populations.Call to Action:If you enjoyed this discussion, please subscribe to PICU Doc On Call and leave a review. Have a topic you'd like us to cover? Reach out to us via email or on social media!Follow Us:Twitter: @PICUDocOnCallEmail:
Not only do Becca Ingersoll's twin boys Lincoln and Logan have special needs, Lincoln was diagnosed with B Cell Acute Lymphoblastic Leukemia when he was 3 years old in January of 2020. Lincoln also has Cerebral Palsy, Hydrocephalus, and Autism. Becca will talk about the very difficult and tricky road that she and her husband Josh have been navigating for the past 7 years, and will also discuss her work as an activist and advocate in the cause of Pediatric Cancer.
One thing is certain about fishermen and fisherwomen, we all enjoy fishing for a cause and getting the competitive juices flowing. This week we had the fortune of supporting and participating in the 2nd Annual No BS Inshore Slam tourney out of Georgetown, S.C. The crew put three teams together to fish and we decided to record our radio show on site at the captains meeting. The Mears family founded this event to raise funds to help with research and treatments for Hydrocephalus. Also known as water on the brain, this is a condition in which there is an accumulation of cerebrospinal fluid within the brain. Funds from this event will go to help with research as well as helping provide treatment for patients that will not include braind surgery(BS). Our guests this week included some of our normal hosts as well as a few surprise guests. We hope you are enjoyinf a successful fall on the water or in the woods and remember to tag us in your prized pictures with your catches or harvests. visit www.trilogyoutdoorsmedia.com for more info on current events. Become a supporter of this podcast: https://www.spreaker.com/podcast/trilogy-outdoors--5441492/support.
During this episode of Making the Rounds, we'll discuss normal pressure hydrocephalus (NPH), how it's diagnosed as well as challenges with the diagnostic process, non-surgical treatment options and surgical interventions. We'll also share information about the new Center for Normal Pressure Hydrocephalus at Banner Health in Phoenix. You'll hear from Dr. Robert Bina, a neurosurgeon specializing in epilepsy surgery and restorative neurosurgery at Banner - University Medicine Phoenix and assistant professor of neurosurgery at the University of Arizona College of Medicine - Phoenix. To learn more about this topic or other neurological related services provided at Banner Health, please visit bannerhealth.com/brainandspine.
Normal Pressure Hydrocephalus is one of a few reversible causes of dementia. Dr. Garni Barkhoudarian, director of the Pacific Adult Hydrocephalus Center, briefly describes the symptoms, diagnosis and treatment of this condition.
Send us a Text Message.Had the pleasure of speaking with independent wrestling promoter James Toney! On episode 117, we discussed overcoming bullying, getting involved in both boxing and wrestling, starting his own promotion, raising awareness about Hydrocephalus, and more. You can find out more about Toney here:https://www.facebook.com/JamTone1Check out Precision Kombat League on YouTube:https://www.youtube.com/@totalprecisionkombat1599Are you a pro wrestler and have done community service and/or charity work? E-mail the podcast at wrestlingwithheart@yahoo.com and tell us if you would be interested in being interviewed.Follow us on:Facebook: Wrestling with Heart with Stanley KarrX: @wwhwskInstagram: @wrestlingwithheartThreads: @wrestlingwithheartHear Wrestling with Heart on Apple Podcasts: https://podcasts.apple.com/us/podcast...Hear Wrestling with Heart on Spotify: https://open.spotify.com/show/46cviL5...Hear Wrestling with Heart on iHeartRadio: https://www.iheart.com/podcast/269-wr...Hear Wrestling with Heart on Google Podcasts: https://podcasts.google.com/search/Wr...Donate to my Patreon and subscribe to my content here: https://www.patreon.com/user?u=84502525Support the Show.
This week we are honored to welcome pediatric neurosurgeon, Dr. David Bonda to Ask Dr Jessica! We have an indepth conversation about head injuries, large and small head sizes, hydrocephalus, epilepsy, recent advancements in his field of medicine, and more! Parents, you'll enjoy Dr Bonda---he's articulate, thoughtful, and you'll learn so much! Dr. Bonda is a native of Cleveland, Ohio. He received his BA in neuroscience at The University of Pennsylvania and his MD at Case Western Reserve University School of Medicine. After completing his neurosurgical residency training at The Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, he went on to complete his fellowship in pediatric neurosurgery at The University of Washington/Seattle Children's Hospital. At Cedars-Sinai/Guerin Children's, Dr. Bonda runs the surgical epilepsy program along with pediatric epileptologist Dr. Debbie Holder where they provide comprehensive epilepsy care for patients with drug resistant epilepsy.Dr Jessica Hochman is a board certified pediatrician, mom to three children, and she is very passionate about the health and well being of children. Most of her educational videos are targeted towards general pediatric topics and presented in an easy to understand manner. Do you have a future topic you'd like Dr Jessica Hochman to discuss? Email Dr Jessica Hochman askdrjessicamd@gmail.com. Follow her on Instagram: @AskDrJessicaSubscribe to her YouTube channel! Ask Dr JessicaSubscribe to this podcast: Ask Dr JessicaSubscribe to her mailing list: www.askdrjessicamd.comThe information presented in Ask Dr Jessica is for general educational purposes only. She does not diagnose medical conditions or formulate treatment plans for specific individuals. If you have a concern about your child's health, be sure to call your child's health care provider.
Golf to End Hydrocephalus comes to West Palm full 526 Wed, 31 Jul 2024 23:46:45 +0000 mdZ7ut91WmklrSeZHHiVhcNtkOOuI2Bl ESPN West Palm Tonight Golf to End Hydrocephalus comes to West Palm ESPN West Palm Tonight 2021, Good Karma Brands, LLC
Rachel is a certified Family Nurse Practitioner with over 13 years of experience working at one the most prestigious hospitals in the world. She is a former critical care nurse and nurse educator; teaching in both the clinical and classroom setting. After noticing changes in her infant son's behavior, Rachel took matters into her own hands and began to get a second (and third) opinion to receive the devastating news that he had Hydrocephalus, an incurable brain disease that is caused by excessive fluid buildup inside the brain. Rachel now has this inside and outside perspectives of the healthcare world to help shine a light on boundaries to set and ways to advocate for yourself and your loved ones. Key Takeaways [00:03:17] Trusting medical professionals vs. self-advocating [00:09:17] Diagnosis impact [00:14:32] Seeking multiple medical opinions [00:19:13] Overcoming challenges with neuroplasticity [00:23:24] Importance of a team you can trust [00:26:30] Setting boundaries with medical providers [00:33:13] Mishandling of care [00:37:26] Understanding empathy in healthcare [00:41:09] Limitations of medical providers [00:46:09] Hope for Hydro Where to Find Rachel LinkedIn – Rachel Malec Facebook – Rachel Malec Instagram – @RachelMalec Website – HopeForHydro.Org How to find us - Visit our website – hardnopodcast.com – for show notes, which include links to books and other helpful resources. Like what you hear? Please subscribe, rate and review so others can find us, and make sure to follow us on social media. We're @hardnopodcast on Instagram, Facebook, LinkedIn & YouTube.
This is the third in a special series of interviews within the SFN Dad To Dad Podcasts to be known as the SFN Mastermind Group Monday Podcasts. Each Monday host David Hirsch will interview one of the SFN Mastermind Group dads on the impact the mastermind group has had on him and the wellbeing of his family. This Monday's guest is Jeff Johnson of Anderson, SC who works as a meat cutter at Publix Supermarkets and father of two boys, including one with profound disability.Jeff and his wife, Michelle, have been married for 40 years and are the proud parents of two adult children; Michael (29) and Daniel (26) who has Hydrocephalus and Encephalocele is non-verbal, non-ambulatory and ventilator dependent. Jeff has been part of the Wednesday night SFN Mastermind Group, has attended the annual weekend SFN Mastermind Group Retreats and was featured in episode #155 of the SFN Dad To Dad Podcast in June of 2021.Show Notes -Phone – 864-444-8170 Email – jj841916@gmail.comSFN Dad To Dad Podcast – https://21stcenturydads.org/155-jeff-johnson-of-anderson-sc-father-of-two-including-a-son-with-hydrocephalus-encephalocele/Jeff's Favorite Books Reviewed As Part Of The Mastermind Group – The Ultimate Gift, by Jim StovallThinking In Pictures, by Dr. Temple GrandinThe Leader Within Us, by Warren RustandAbout the SFN Mastermind Group – WHAT- SFN Mastermind Group dads meet weekly by Zoom for 75 minutes. Each meeting:◦ starts with a round of wins from the past week,◦ includes a discussion of the current book (6 per year) being reviewed,◦ has two Dad-In-The-Middle sessions for dads to share a challenge, and◦ ends with a recap and look at the week ahead. WHO - SFN Mastermind Group Dads are those:◦ seeking meaningful friendships with like-minded dads,◦ willing to invest their time and make a financial commitment,◦ looking for a safe place to be open and authentic, and◦ who realize seeking advice is a strength, not a weakness. WHY - SFN Mastermind Group Dads benefit by:◦ realizing they are NOT alone◦ having better relationships with their spouse,◦ developing improved understandings of their child(ren),◦ tapping into the experience and wisdom of others,◦ getting weekly encouragement from like-minded dads, and◦ creating a pathway to become the best version of themselves21st Century Dads Foundation is looking to provide 100 special needs fathers with the opportunity to be part of the class of 2024 Mastermind Group. Curious to learn more?Are you looking to meet like-minded dads?Do you feel like something is missing? SFN Mastermind Group FAQs - https://21stcenturydads.org/sfn-mastermind-group/ Schedule A Call - https://21stcenturydads.org/sfn-mastermind-group-inquiry-form/
Dan McCoy's journey embodies resilience and triumph. Despite being born with Spina Bifida and Hydrocephalus, he soared to victory with Team USA's Paralympic Sled Hockey Team in 2014, securing a cherished Gold Medal. This triumph ignited his passion for fitness and nutrition, driving him to empower others, irrespective of their challenges, to embrace healthier lifestyles. As a certified personal trainer, Dan dedicates himself to guiding individuals towards their fitness goals with compassion and understanding.Touched by this episode? Donate to LYM Podcast:https://www.buymeacoffee.com/leaveyourmarkReach out to us on our website!https://www.leaveyourmarkvc.com/contactAll LYM online pages:www.Linktr.ee/VinniecVince Cortese, Author: My Story about Courage and FaithBad Days are Really Good Days in Disguisehttps://amzn.to/3TB6VBPJoin LYM Newsletter:http://bit.ly/JoinMEonLYMWatch on YouTubeSponsors of this episode:Affiliate Link in this episode:Support the Show.
When Jessica (Jessi) Cohen's routine ultrasound revealed a reality no parent should ever confront—her unborn baby, diagnosed with severe hydrocephalus and missing brain parts—their story took a turn towards the extraordinary. This episode invites you to walk alongside Jessi as she recounts the anguish and hope that defined her journey from that life-altering diagnosis to witnessing her daughter, Naysa Angélica's (her name means miracle of God, messenger of God), astonishing defiance of medical expectations. Through this conversation we discover a mother's undying faith and the deep strength she drew from it amidst the toughest decisions a parent could face.Navigating a path seeped with medical opinions that often echoed hopelessness, Jessi's story sheds light on the often-clinical detachment and the contrasting support through select healthcare specialists. Her high-risk pregnancy, marked by anxiety-inducing consultations and a prenatal supplement discovery, Jessi will not just touch your heart, but also testify to the profound impact of faith. Every update, every doctor's visit, and the eventual emergency C-section—a moment of crisis enveloped in prayer and song—reminds us of the immeasurable depths of God's grace in life's toughest times.We end this episode by sharing in the joy of Naysa Angélica's progress, a living testament to the miraculous health, found in God our Healer. Jessi's story doesn't end with a miraculous birth; it's an ongoing victory of overcoming the odds, from Naysa's achievements in crawling and speaking to the prospect of a bright future. And for those seeking support on their own healing journeys, we share the hope found in HealingStrong—a faith-based cancer and disease support community that embodies the very essence of hope and empowerment, reminding us all that even amidst life's greatest trials, we are never alone.We know this episode will bless you!Visit our Bible Study Plans mentioned in the interview:YouVersion Bible PlansTo download for free any of the HealingStrong Bible plans, please visit: healingstrong.org/refreshHealingStrong's mission is to educate, equip and empower our group leaders and group participants through their journey with cancer or other chronic illnesses, and know there is HOPE. We bring this hope through educational materials, webinars, guest speakers, conferences, community small group support and more.Please consider supporting our mission by becoming a part of our Membership Program, as a monthly donor.When you do, you will receive additional resources such as: webinars, access to ALL our past and most recent conference videos, downloadables and more, as a bonus.To learn more, head to the HealingStrong Membership Program link below: Membership Program
You'll definitely run into questions about CSF. In this episode, Bilal Rana will go over some must know points about communicating and noncommunicating hydrocephalus, as well as hydrocephalus ex vacuo.
What do you do when a teenager with odd (and concerning) neurological symptoms walks into you ER and how do you apply the PEM Rules to work him up step by step?
On Friday we spoke to Amanda Coughlan Founder and Co-Lead of the paediatric advocacy group for children with Spina Bifida and Hydrocephalus and Tony Foly who's son Ronan waited 3 years for spinal surgery about how the government have neglected their children's spinal issues.To discuss this further, Kieran was joined by Sinn Fein Health Spokesperson, David Cullinane and Retired Orthopedic Surgeon, Peter O'Rourke...
Episode 164: More Than Just A HeadacheDr. Song presents a case of a subacute headache that required an extensive workup and multiple visits to the hospital and clinic to get a diagnosis. Dr. Arreaza added comments about common causes of subacute headaches. Written by Zheng (David) Song, MD. Editing and comments by Hector Arreaza, MD. You are listening to Rio Bravo qWeek Podcast, your weekly dose of knowledge brought to you by the Rio Bravo Family Medicine Residency Program from Bakersfield, California, a UCLA-affiliated program sponsored by Clinica Sierra Vista, Let Us Be Your Healthcare Home. This podcast was created for educational purposes only. Visit your primary care provider for additional medical advice.Introduction to the episode: We are happy to announce the class of 2027 of the Rio Bravo / Clinica Sierra Vista Family Medicine Residency Program. Our new group will be (in alphabetical order): Ahamed El Azzih Mohamad, Basiru Omisore, Kenechukwu Nweke, Mariano Rubio, Nariman Almnini, Patrick De Luna, Sheila Toro, and Syed Hasan. We welcome all of you. We hope you can enjoy 3 enriching and fulfilling years. During this episode, you will hear a conversation between Dr. Arreaza and Dr. Song. Some elements of the case have been modified or omitted to protect the patient's confidentiality. 1. Introduction to the case: Headache. A 40-year-old male with no significant PMH presents to the ED in a local hospital due to over a month history of headaches. Per the patient, headaches usually start from the bilateral temporal side as a tingling sensation, and it goes to the frontal part of the head and then moves up to the top of the head. 8 out of 10 severities were the worst. Pt reports sometimes hypersensitivity to outdoor sunlight but not indoor light. OTC ibuprofen was helpful for the headache, but the headache always came back after a few hours. The patient states that if he gets up too quickly, he feels slightly dizzy sometimes, but it is only for a short period of time. There was only one episode of double vision lasting a few seconds about 2 weeks ago but otherwise, the patient denies any other neurological symptom. He does not know the cause of the headache and denies any similar history of headaches in the past. The patient denies any vomiting, chest pain, shortness of breath, cough, abdominal pain, or joint pain. The patient further denies any recent traveling or sick contact. He does not take any chronic medication. The patient denies any previous surgical history. He does not smoke, drink, or use illicit drugs. What are your differential diagnoses at this moment? Primary care: Tension headache, migraines, chronic sinusitis, and more.2. Continuation of the case: Fever and immigrant.Upon further inquiries, the patient endorses frequent “low-grade fever” but he did not check his temperature. He denies any significant fatigue, night sweats, or weight loss. He migrated from Bolivia to the U.S. 12 years ago and has been working as a farm worker in California for the past 10 years. He is married. His wife and daughter are at home in Bolivia. He is currently living with friends. He is not sexually active at this moment and denies having any sexual partners. Differential diagnoses at this moment? Tension headache, migraine, infections, autoimmune disease, neurocysticercosis. 3. Continuation of the case: Antibiotics and eosinophilia. As we kept asking for more information, the patient remembered he visited a clinic about four months ago for a dry cough and was told he had bronchitis and was given antibiotics and the cough got better after that. He went to another local hospital ED one month after that because the cough came back, now with occasional phlegm and at that time he also noticed two “bumps” on his face but nothing significant. After a CXR at the ED, the patient was diagnosed with community-acquired pneumonia and sent home with cough medication and another course of antibiotics. His cough improved after the second round of antibiotics. We later found on the medical record that the CXR showed “mild coarse perihilar interstitial infiltrates of unknown acuity”. His blood works at the ED showed WBC 15.2, with lymphocyte 21.2%, monocyte 10.1%, neutrophil 61.7%, eosinophil 5.9% (normally 1-4%), normal kidney, liver functions, and electrolytes, and prescribed with benzonatate 100mg TID and doxycycline 100mg bid for 10 days. He went to the same ED one month before he saw us for headache and fever (we reviewed his EMR, and temp was 99.8F at the ED). After normal CBC, CMP and chest x-ray. The patient was diagnosed with a viral illness and discharged home with ibuprofen 400mg q8h.Due to the ongoing symptoms of headache and fever, the patient went back to the same clinic he went to four months ago for a dry cough and requested a complete physical and blood work. The patient was told he had a viral condition and was sent home with oseltamivir (Tamiflu®) for five days. However, the provider did order some blood work for him. Differential diagnoses at this moment? Patients with subacute meningitis typically have an unrelenting headache, stiff neck, low-grade fever, and lethargy for days to several weeks before they present for evaluation. Cranial nerve abnormalities and night sweats may be present. Common causative organisms include M. tuberculosis, C. neoformans, H. capsulatum, C. immitis, and T. pallidum. At his physical exam visit, the patient actually asked the provider specifically to check him for coccidiomycosis because of his job as a farm worker and he heard from his friends that the infection rate is pretty high in the Central Valley of California. His serum cocci serology panel showed positive IGG and IGM with CF titer of 1:128. His HIV, syphilis, HCV, HBV are all negative. The patient was told by that clinic to come to ED due to his history of headache, fever, and very high serum coccidiomycosis titer. The senior and resident intern were on the night shift that night and we were contacted by the ED provider at around 9:30 pm for this patient. When reviewing his ED record, his vitals were totally normal at the ED, the preliminary ED non-contrast head CT showed no acute intracranial abnormality. A lumbar puncture was performed by the ED provider, which showed WBCs (505 - 71%N, 20%L, 7%M), RBC (1), glucose (19), and protein (200). CSF: High Leukocytes, low glucose, and high protein.On the physical exam, the patient was pleasant and cooperative, he was A&O x 4, he had a normal examination except for two brown healing small nodules on his forehead and left cheek and slight neck stiffness. At that point, we knew the patient most likely had fungal meningitis by cocci except for the predominant WBC in his CSF fluid was neutrophil not the more typical picture of lymphocyte dominant. And because of his very benign presentation and subacute history, we were not 100% sure if we had a strong reason to admit this patient. We thought this patient could be managed as an outpatient with oral fluconazole and referred to infectious disease and neurology. 4. Continuation of case: Admission to the hospital.Looking back, one thing that was overlooked while checking this patient in the ED was the LP opening pressure. Later, the open pressure was reported as 340mm H2O (very high). The good thing was, after speaking to the ED attending and our attending, the patient was admitted to the hospital and started on oral fluconazole. Three hours after the admission, a rapid response was called on him. While the floor nurses were doing their check-in physical examination, the patient had a 5-minute episode of seizure-like activity which included bilateral tonic arm/hand movements, eye deviation to the left, LOC unresponsive to sternal rub, and the patient desaturated to 77%. He eventually regained consciousness after the seizure and pulse oximetry increased to 100% on room air. The patient was started on Keppra and seen by a neurologist the following day. His 12-hour EEG was normal, but his head MRI showed “diffuse thickening and nodularity of the basal meninges are seen demonstrating enhancement, suggesting chronic meningitis, possibly related to cocci. Other etiologies including sarcoidosis and TB meningitis and/or infiltration by metastatic process/lymphoma are not excluded. The ventricles are slightly prominent in size”. MRI of the cervical, thoracic, and lumbar spines also showed extensive diffuse leptomeningeal thickening, extensive meningitis, and nodular dural thickening. Also, his chest x-ray showed “some heterogeneity and remodeling of the distal half of the left clavicle. Metabolic bone disease, infectious etiology and/old trauma considered”. This could also be due to disseminated cocci infection. The infectious disease doctor saw this patient and recommended continuing with fluconazole, serial LPs until opening pressure is less than 250 mmH2O and neurosurgery consultation for possible VP shunt placement. The neurologist recommended the patient continue with Keppra indefinitely in the context of structural brain damage secondary to cocci meningitis.Take home points: Suspect cocci meningitis in patients with subacute headache associated with respiratory symptoms, new skin lesions, photophobia, neck stiffness, nausea, vomiting, eosinophilia, erythema nodosum (painful nodules on the anterior aspect of legs). Other symptoms to look for include arthralgias, particularly of the ankles, knees, and wrists.____________________Brief summary of coccidiomycosis. Etiology Coccidioidomycosis, commonly known as Valley fever, is caused by dimorphic soil-dwelling fungi of the genus Coccidioides (C. immitis and C. posadasii). They are indistinguishable in clinical presentation and routine laboratory test results.1, 2, 3, 5Epidemiology In the United States, endemic areas include the southern portion of the San Joaquin Valley of California and the south-central region of Arizona. However, infection may be acquired in other areas of the southwestern United States, including the southern coastal counties in California, southern Nevada, southwestern Utah, southern New Mexico, and western Texas (including the Rio Grande Valley). There are also cases in eastern Washington state and in northeastern Utah. Outside the United States, coccidioidomycosis is endemic to northern Mexico as well as to localized regions of Central and South America.1, 2Overall, the incidence within the United States increased substantially over the 1998-2019, most of that increase occurred in south-central Arizona and in the southern San Joaquin Valley of California. From 1998 to2019, reported cases in California increased from 719 to 9004.1, 6The risk of infection is increased by direct exposure to soil harboring Coccidioides. Past outbreaks have occurred in military trainees, archaeologists, construction or agricultural workers, people exposed to earthquakes or dust storms. However, in endemic areas, many cases of Coccidioides infection occur without obvious soil or dust exposure and are not associated with outbreaks. Change in population, climate change, urbanization and construction activities, and increased awareness and reporting, are possible contributing factors.1, 2, 5 Pathology In the soil, Coccidioides organisms exist as filamentous molds. Small structures called arthroconidia from the hyphae may become airborne for extended periods. Arthroconidia are usually 3-5 μm—small enough to evade bronchial tree mucosal mechanical defenses and reach deep into the lungs.1, 3Once inhaled by a susceptible host into the lung, the arthroconidia develop into spherules (theparasitic existence in a host), which are unique to Coccidioides. Endospores from ruptured spherules can themselves develop into spherules, thus propagating infection locally.1, 3, 5Although rare cases of solid organ donor-derived or fomite transmitted infections have been reported, coccidioidomycosis does not occur in person-to-person or zoonotic contagion, and transplacental infection in humans has never been documented.2, 5Cellular immunity plays a crucial role in the host's control of coccidioidomycosis. Among individuals with decreased cellular immunity, Coccidioides may spread locally or hematogenously after an initial symptomatic or asymptomatic pulmonary infection to extrathoracic organs.1, 3, 7Clinical manifestationThe majority of infected individuals (about 60%) are completely asymptomatic. Symptomatic persons (40% of cases) have symptoms that are related principally to pulmonary infection, including cough, dyspnea, and pleuritic chest pain. Some patients may also experience fever, headache (common finding in early-stage infection and does not represent meningitis), fatigue, night sweats, rash, myalgia.1, 2, 3, 5In most patients, primary pulmonary coccidioidomycosis usually resolves in weeks without sequelae and lifelong immunity to reinfection. However, some patients may develop chronic pulmonary complications, such as nodules or pulmonary cavities, or chronic fibrocavitary pneumonia. Some individuals with intense environmental exposure or profoundly suppressed cellular immunity (e.g., in patients with AIDS) may develop a primary pneumonia with diffuse reticulonodular pulmonary process in association with dyspnea and fever.1, 3, 5Fewer than 1% of infected individuals develop extrathoracic disseminated coccidioidal infection. Common sites for dissemination include joints and bones, skin and soft tissues, and meninges. One site or multiple anatomic foci may be affected. 1, 2, 3, 7It is estimated that coccidioidal meningitis, the most lethal complication of coccidioidomycosis, affects only 0.1% of all exposed individuals. Patients with coccidioidal meningitis usually present with a persistent headache (rather than a self-limited headache in some patients with primary pulmonary infection), with nausea and vomiting, and sometimes vision change. Some may also develop altered mental status and confusion. Meningismus such as nuchal rigidity, if present, is not severe.Hydrocephalus and cerebral infarction may develop in some cases. Papilledema is more commonly observed in pediatric patients.1, 3, 4, 5, 7When meningitis develops, most patients may not have any respiratory symptoms nor radiographic manifestation of pulmonary infection. However, a large number of these individuals also present with other extrathoracic lesions.7DiagnosisAlthough early diagnosis carries obvious benefits for patients and the health care systems as a whole (e.g., decreases patient anxiety, reduces the cost of expensive and invasive tests, removes the temptation for empirical antibacterial or antiviral treatments, and allows for early detection of complications), considerable diagnostic delays up to several weeks to months are common in both endemic areas and non-endemic areas.3, 7 Most symptomatic persons with coccidioidal infection present with primarily pulmonary symptoms and are often misdiagnosed as community-acquired bacterial pneumonia and treated with antibiotics. In endemic areas like south-central Arizona, previous studies found up to 29% of community-acquired pneumonia is caused by coccidioidomycosis. Healthcare providers thus should maintain a high clinical suspicion for coccidioidomycosis when evaluating persons with pneumonia who live in or have traveled to endemic areas recently. Elevated peripheral-blood eosinophilia of over 5%, hilar or mediastinal adenopathy on chest radiography, marked fatigue, and failure to improve with antibiotic therapy should prompt suspicion and testing for infection with coccidioidomycosis in endemic areas.1, 3, 5Serological testing plays an important role in establishing a diagnosis of coccidioidomycosis. Enzyme immunoassay (EIA) to detect IgM and IgG antibodies is highly sensitive and therefore commonly used as the screening tool. Immunodiffusion is more specific but less sensitive than enzyme immunoassay. It is used to confirm the diagnosis of positive EIA test results. Complement fixing (CF) test, which indirectly detects the presence of coccidioidal antibodies by testing the consumption of serum complement, are expressed as titers. Serial measurements of titers are of not only diagnostic but also prognostic value.1, 2, 3, 5Other methods, including culture, microscopic, or polymerase chain reaction (PCR) exam on tissue or respiratory specimens, are limited by their availability, sample obtaining and handling, or lack of sufficient evaluation.1, 2, 3, 5Cerebrospinal fluid (CSF) examination in coccidioidal meningitis usually demonstrates lymphocyte dominated elevation of leukocytes, although polymorphonuclear leukocyte dominance can also be seen in the early stage of the infection. Profound hypoglycorrhachia and elevated protein levels in CSF examination are also very common in coccidioidal meningitis.1, 7Although isolating Coccidioides from CSF or other CNS specimens are diagnostic for coccidioidal meningitis, in practice, diagnoses are often made based on the combination of clinical presentation, CSF examination that suggesting fungal infection, and positive Coccidioides antibodies found in CSF.7Imaging, especially enhanced magnetic resonance imaging (MRI), can help in diagnosing coccidioidal meningitis. Basilar leptomeningeal enhancement is a more common finding even though hydrocephalus, cerebral infarction, and vertebral artery aneurysm can also be seen.7TreatmentMost patients with focal primary pulmonary coccidioidomycosis do not require antifungal therapy. According to 2016 Infectious Diseases Society of America (IDSA) Clinical Practice Guideline, antifungal therapy should be considered in patients with concurrent immunosuppression that adversely affect cellular immunity (e.g., organ transplant patients, AIDS in HIV-infected patients, and patients receiving anti–tumor necrosis factor therapy) and those with significantly debilitating illness, extensive pulmonary involvement, with concurrent diabetes, pregnant women, or who are otherwise frail because of age or comorbidities. Some experts would also include African or Filipino ancestry as indications for treatment. Conversely, humoral immunity comprise splenectomy, hypocomplementemia, or neutrophil dysfunction syndromes are not major risk factors for this disease.1, 2, 3, 4, 5Triazole antifungals (fluconazole or itraconazole) are currently considered as the first-line medications used to treat most cases of coccidioidomycosis. Amphotericin B is reserved for only the most severe cases of dissemination and patients with coccidioidal meningitis in whom triazole antifungal therapy has failed. It is also the choice of therapy for coccidioidomycosis in pregnant women during the first trimester because of the possible teratogenic effect of high-dose triazole therapy during this period of time.1, 3, 4, 5Treating coccidioidal meningitis (CM) poses a special challenge because untreated meningitis is nearly always fatal. Lifelong therapy is recommended for CM because the majority 80% patients with CM experience relapse when therapy is stopped despite initial response to antifungal treatment. Shunting of CSF is required in cases of meningitis complicated by hydrocephalus.1, 3, 4, 5, 7Prevention Avoidance of direct contact with contaminated soil in endemic areas (e.g., respirator use by construction workers) may reduce disease risk, although clear evidence of its benefit is lacking.1, 5Some special population groups may benefit from prophylactic use of antifungals, such as those about to undergo allogeneic solid-organ transplantation or patients with a history of active coccidioidomycosis or a positive coccidioidal serology in whom therapy with tumor necrosis factor α antagonists is being initiated. The administration of prophylactic antifungals is not recommended for HIV-1-infected patients even if they live in an endemic region.1, 5Conclusion: Now we conclude episode number 164, “More than just a headache.” Dr. Song explained that a headache with an indolent course, accompanied by subacute respiratory symptoms, nausea, vomiting, photophobia, neck stiffness, and skin lesions can be secondary to Valley Fever. The Central Valley of California, as well as other areas with dry climate, are endemic and we need to keep this disease in our differential diagnosis.This week we thank Hector Arreaza and Zheng (David) Song. Audio editing by Adrianne Silva.Even without trying, every night you go to bed a little wiser. Thanks for listening to Rio Bravo qWeek Podcast. We want to hear from you, send us an email at RioBravoqWeek@clinicasierravista.org, or visit our website riobravofmrp.org/qweek. See you next week! _____________________References:Roos KL, Tyler KL. Acute Meningitis. McGraw Hill Medical. Published 2023. Accessed August 18, 2023. https://accessmedicine.mhmedical.com/content.aspx?bookid=2129§ionid=192020493Information for Healthcare Professionals. Published 2023. Accessed August 18, 2023. https://www.cdc.gov/fungal/diseases/coccidioidomycosis/health-professionals.html#printValley Fever (Coccidioidomycosis) a Training Manual for Primary Care Professionals. Accessed August 18, 2023. https://vfce.arizona.edu/sites/default/files/valleyfever_training_manual_2019_mar_final-references_different_colors.pdfAmpel NM. Coccidioidomycosis. Idsociety.org. Published July 27, 2016. Accessed August 18, 2023. https://www.idsociety.org/practice-guideline/coccidioidomycosis/Herrick KR, Trondle ME, Febles TT. Coccidioidomycosis (Valley Fever) in Primary Care. American Family Physician. 2020;101(4):221-228. Accessed August 18, 2023. https://www.aafp.org/pubs/afp/issues/2020/0215/p221.htmlValley Fever Statistics. Published 2023. Accessed August 18, 2023. https://www.cdc.gov/fungal/diseases/coccidioidomycosis/statistics.htmlUpToDate. Uptodate.com. Published 2023. Accessed August 18, 2023. https://www.uptodate.com/contents/coccidioidal-meningitis?search=7%20Coccidioidal%20meningitis&source=search_result&selectedTitle=1~10&usage_type=default&display_rank=1Royalty-free music used for this episode: Tropicality by Gushito, downloaded on July 20, 2023, from https://www.videvo.net/
A life-changing diagnostic device tested on sheep in New Zealand is about to be trialled on humans
Normal pressure Hydrocephalus or Alzheimer's? Taking a look at NPH with Dr. Samantha Chamberlain, PT, DPT Want to make sure you stay on top of all things geriatrics? Go to https://MMOA.online to check out our Free eBooks, Lectures, & the MMOA Digest!
In this episode, we review the high-yield topic of Normal Pressure Hydrocephalus from the Neurology section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets
1 John ac Alun – ymweld â Phorthdinllaen: Ar drothwy Eisteddfod Genedlaethol Llŷn ac Eifionydd eleni aeth John ac Alun am dro o gwmpas eu hoff lefydd ym Mhen Llŷn, a dewis John oedd cael mynd draw i Borthdinllaen, a rhoi gwahoddiad i Meinir Pierce Jones, un o ferched yr ardal i ddod yno am sgwrs.Arwyddocâd Significance Cysgod diogel Safe shelter Delfrydol Ideal Dyfnder Depth Porthladdoedd Ports Gofaint Blacksmith Seiri Carpenters Safle diwydiannol An industrial site Gan fwya Mostly Argian Good Lord Trochi traed Paddling2 Clip Aled Hughes:Mae hi'n anodd meddwl am Borthdinllaen fel safle diwydiannol yn tydy? Tybed faint o'r twristiaid sy'n mynd yno bob blwyddyn sy'n gwybod am hanes y lle?Ac mi arhoswn ni ym Mhen Llŷn efo'r clip nesa ‘ma. Ar Orffennaf y 26ain y llynedd, wrth edrych ‘mlaen at Eisteddfod Genedlaethol Llŷn ac Eifionydd, mi gafodd Aled Hughes gwmni'r Archdderwydd Myrddin ap Dafydd ac aeth y ddau i gopa'r Eifl, a dyma chi flas o'u sgwrs.Awgrym A suggestion Machlud Sunset Rhufeiniaid yn cilio The Romans withdrawing Anwybyddu To ignore Gwyddelod Irish people Gwaywffon Spear Penwaig Herring Dinasyddiaeth Citizenship Diwylliedig Cultured Tyndra ar y ffin Tension on the border3 Beti a'i Phobol:Dipyn bach o hanes ardal yr Eifl yn fanna gan yr Archdderwydd Myrddin ap Dafydd.Sioned Lewis oedd gwestai Beti a'i Phobol ar y 7fed o Fai 2023. Mae Sioned yn Gwnselydd ac yn Seicotherapydd ac yn dod yn wreiddiol o Ddolwyddelan yn Sir Conwy. MI fuodd hi'n gweithio mewn sawl maes gwahanol, yn gwerthu tai, yn y byd teledu a gyda Mudiad Ysgolion Meithrin. Sioned ydy Cwnselydd y rhaglen Gwesty Aduniad ar S4C. Yn y clip hwn mae hi'n sôn am ei hamser yn dioddef o gancr y fron:Archdderwydd Archdruid Cancr y fron Breast cancer Efo chdi Gyda ti Cwffio Ymladd Dychmygu Imagining Cyfres Series Triniaethau Treatments Ffydd Faith Blin Yn grac Ymdopi Coping Y blaenoriaeth The priority4 Bore Cothi:Sioned Lewis oedd honna'n siarad am ei phrofiad o fod efo cancr y fron.Ar Fedi'r 27ain y llynedd, mi roedd Max Boyce yn dathlu ei ben-blwydd yn 80, ac i nodi'r garreg filltir arbennig yma mi fuodd Max allan ar y ffordd unwaith eto yn perfformio mewn cyfres o gyngherddau. Mi gafodd Shan sgwrs efo Max cyn y daith, gan gychwyn drwy ofyn oedd y penderfyniad i deithio eto'n un anodd? Carreg filltir Milestone Yr hewl (heol) The road Rhoi'r ffidil yn y to To give up Cwpla Gorffen Ysbrydoli To inspire Clwb gwerin Folk club Uniaethu To identify Ystyried To consider5 Caryl Parry Jones: Y bytholwyrdd Max Boyce yn dathlu ei ben-blwydd drwy berfformio - wel be arall ynde? Yn ôl ym mis Mai 2023 cafodd Caryl sgwrs gyda Heather Hughes. Mae Heather yn aelod o grŵp nofio Titws Tomos Môn. Yn 2019 mi gafodd hi waedlif ar yr ymennydd a chyflwr o'r enw Hydrocephalus, sef dŵr ar yr ymennydd. Ers hynny mae hi'n nofio yn y môr ym mhob tywydd. Yn y clip hwn cawn glywed Heather yn sôn am ei phrofiad, a pha mor llesol ydy nofio yn y môr iddi hi:Bytholwyrdd Evergreen Gwaedlif ar yr ymennydd Brain haemorrhage Cyflwr Condition Llesol Beneficial Poblogrwydd Popularity Llwythi Loads Goro Gorfod6 Trystan ac Emma:Dyna enw da ar y grŵp ynde – Titws Tomos Môn!Ddechrau mis Rhagfyr mi gafodd Rhaglen Trystan ac Emma wahoddiad i Gaffi Largo ym Mhwllheli. Mi fuodd yna lawer o hwyl a sbri yn y caffi - yn siarad efo'r staff ac efo pobl leol. Un ohonyn nhw oedd Christine Jones o dre Pwllheli:Haeddu To deserve Bobol annwyl! Goodness me! Brolio To boast Yn rhagori Surpasses Nionyn picl Pickled onion7 Ffion Dafis:Christine Jones – un o gymeriadau ardal Pwllheli yn dod â llwyth o hwyl a chwerthin i Gaffi Largo'r dre.Ac yn ardal Pwllheli oedd yr Eisteddfod Genedlaethol eleni wrth gwrs ac yno cafodd fersiwn e-lyfr o'r nofel boblogaidd iawn, Un Nos Ola Leuad gan Caradog Pritchard, ei lawnsio, efo'r actorion John Ogwen a Maureen Rhys yn ei darllen. Yn y clip hwn ar raglen Ffion Dafis mae John yn sôn am y tro cynta daeth o ar draws y nofel:Digwyddiad Event Gwerthfawrogi To appreciate Beirdd Poets Lleuad Moon Gwên ryfeddol A wonderful smile Dagrau Tears Atgof Recollection
Listen as Dr. London Smith (.com) and his producer Cameron discuss Normal Pressure Hydrocephalus as they share what's coming up on their new streaming service. Sponsored by Caldera + Lab (use code "jockdoc" to get 20% off!). Not so boring! https://calderalab.com/pages/podcast-special-offer?show=Jock+Doc&utm_medium=podcast&utm_source=JocDoc https://www.patreon.com/join/jockdocpodcast Hosts: London Smith, Cameron Clark. Produced by: Dylan Walker Created by: London Smith
Hydrocephalus is a neurological disorder caused by an abnormal buildup of cerebrospinal fluid in the ventricles (cavities) deep within the brain. This excess fluid causes the ventricles to widen, putting harmful pressure on the brain's tissues. Its a life-threatening condition that affects more than 1 million Americans. Anyone, at any age, can develop hydrocephalus, according to the National Institute of neurological Disorders and Stroke at the National Institute For TV Host Jeff Pearson “I was born in Ft. Collins, CO, in 1977. When I was 2 weeks old, it was confirmed that I had hydrocephalus and aqueductal stenosis, and I received my first shunt. Over the next few years, I had several surgeries, most related to hydrocephalus through about age 10. When I was 18, the summer after graduating from high school, I had a couple more hydrocephalus-related surgeries (one of which was a revision). Following those two surgeries, I had a nice long break for about 18 years. During that time I graduated high school, traveled the world for a year as a singer with a group called Up with People, became a productive, working adult, married Catherine, and we now have 3 amazing children (Elizabeth, Nick, and Kacia) that are growing up way too fast. Between 2013 and 2022, I had 6 more surgeries - 5 of them were directly related to hydrocephalus. Shortly after a revision in 2018, I was sitting in the exam room waiting for my neurosurgeon to come in to do a follow-up. It was quiet in the room, and I began to hear sounds from the room next to mine that sounded like distraught parents. I thought to myself, "I wonder if they are finding out that their child is going to have brain surgery..." That got me thinking and my mind was flooded with thoughts of my parents and what they may have felt after hearing that I had to have brain surgery when I was just 2 weeks old, not to mention all the revisions over the years, the worry they must have felt every time I rode my bike or skateboard somewhere, climbed...anything, or went snowboarding. I wondered if they had any support while I was growing up. Did they have anyone that they could relate to while raising a child with this condition? That gave me the beginning ideas about what would become Hydro with Hope. My wife, Catherine, and I started brainstorming how we might be able to help people. We ultimately decided to join the online community on social media (primarily Facebook and Instagram at the time), and we started our own private group. The idea behind this was to be able to reach people all around the world and let them know that, despite the scariness of brain surgery and the ensuing challenges of living with hydrocephalus, there's HOPE.” He joined me this week to tell me more.
Title: Shunting vs. ETV/Choroid Plexus Fulguration for Hydrocephalus Guest Faculty: Michael G. DeCuypere, MD, PhD Hosts: Rushna Ali, MD and Seth F. Oliveria, MD PhD In this episode we will speak with Dr. Michael DeCuypere about the use of endoscopic techniques including endoscopic third ventriculostomy and/or choroid plexus coagulation in the management of pediatric hydrocephalus.
November 2023 Guidelines Podcast Congress of Neurological Surgeons Systematic Review and Evidence-Based Guidelines on the Treatment of Pediatric Hydrocephalus: Update of the 2014 Guidelines. This podcast updates the 2014 guideline by affirming its recommendations as well as highlighting changes based on new literature, including recommendations on neuro-endoscopic lavage for intraventricular hemorrhage of prematurity and antibiotic impregnated shunt tubing to prevent post operative shunt infection. CNS Guidelines Podcast Host and Moderator: J. Bradley Elder, MD Author: David F. Bauer, MD, MPH Co-host: Brandon Laing, MD
Say hello to our new friend, Paisley!Paisley is a caring, silly and fierce seven-year-old from Kaukauna, WI where she lives with her parents, Ashley and Joshua, and brothers, Noah and Brooks. Paisley loves singing, dancing and being around people.Throughout the month of October, we'll be shouting love for Paisley to raise awareness for her rare medical journey with Neurocutaneous Melanocytosis with Hydrocephalus.
Meet Hailee - a Hydrocephalus Warrior! She goes in to great detail about what life is like living with Hydrocephalus and what she is doing in her own city to spread awareness. If you are interested in following, donating or walking for Hydrocephalus, please see the information below:Website: https://www.hydroassoc.org/Information on the 2023 Hydro Walk:Sunday OCTOBER 8TH 2023 at 9:00am @ Chalco Hills Recreation AreaLink for Omaha Walk: https://secure2.convio.net/hydro/site/TR?fr_id=2047&pg=entryFacebook: @HydroAssoc
Hydrocephalus isn't as widely-known as Parkinson's or Alzheimer's, although about one million Americans live with a diagnosis. And because of this, sharing the stories of those who live every day with the condition makes what was once invisible, visible.Amanda Garzon is the COO of the Hydrocephalus Association. The work of sharing people's stories, connecting the community, and advancing research is close to her heart. Amanda received the diagnosis for her daughter after spending their first 90 days together in the hospital. For Amanda, her strategies about expanding reach and engagement center around empowering and serving her community. But she also believes that there are things to learn from the for-profit world. She said, “We have to think like a for-profit because we are selling this incredibly valuable service, for free! So even though we aren't measuring our profit margins, we are selling ourselves. And it is priceless what we are selling.” Bio:As the Chief Operations Officer, Amanda is responsible for developing and implementing operations strategies that allow the Hydrocephalus Association (HA) to meet its strategic goals and vision. She works in partnership with the CEO and management team to find innovative ways to grow revenue that support the diverse research and patient-focused programs of the association. She oversees the development and oversight of education and advocacy initiatives, patient-centered support services as well as the management and implementation of an aggressive communications and marketing strategy. Amanda's passion for the mission of the association stem from a personal connection to the condition as the mother of an adult daughter with hydrocephalus. In her spare time Amanda enjoys being a mom of two wonderful daughters, yoga, evenings with good friends and food, and leading her high school daughter's Girl Scout troop.Guest links:Amanda's LinkedIn profile: https://www.linkedin.com/in/amanda-garzon-646b408/ Hydrocephalus Association: https://www.hydroassoc.org/ Additional links:SickKids: https://www.sickkids.ca/ Michael J. Fox Foundation: https://www.michaeljfox.org/ Cystic Fibrosis Foundation: https://www.cff.org/ Parkinson's Foundation: https://www.parkinson.org/ Advocate like a Mother: https://www.advocatelikeamother.org/ Playlist:Live Like We're Dying by Kris Allen1979 by The Smashing PumpkinsPeace by O.A.R***Hosted by the brilliant team at Feathr.Feathr is the nonprofit marketing platform designed to help mission and member-based organizations build purposeful connections with their community to grow impact with confidence.
Dr. Tomei, a highly regarded medical professional, has been recognized as a Cleveland Top Doctor since 2019. Her remarkable expertise lies in the field of neurosurgery, where she serves as the Division Chief at Rainbow Babies and Children's Hospital in Cleveland, Ohio. With a specialization in Chiari malformation, Syringomyelia, tethered cord, Hydrocephalus, and various related disorders, Dr. Tomei brings extensive knowledge to the table. In this episode, she generously imparts her wisdom on the crucial aspect of collaborating with a team of medical professionals, emphasizing its significance in your personal journey with your diagnosis. By delving into the diagnosis itself, its implications, and the expected outcomes, Dr. Tomei sheds light on the key elements of symptoms, decompression surgery, and follow-ups, which form the backbone of managing Chiari or related disorders. Covering all essential aspects, you will gain insight into recognizing and addressing symptoms, effectively tracking them, understanding the surgical process, and navigating postoperative follow-ups. Immerse yourself in this enlightening conversation with a distinguished expert in the field of Chiari and related disorders, as you acquire invaluable knowledge to empower your medical journey.
On this episode of The Neurotransmitters, host Dr. Michael Kentris interviews Dr. Jamie Wright about hydrocephalus, a condition that affects the brain. Dr. Wright shares her personal story of being born with the condition and her journey to becoming a doctor. They discuss the two main treatment options for hydrocephalus, the shunt and endoscopic third ventriculostomy procedures. Dr. Wright also advocates for patients to have a neurologist on their healthcare team. The conversation shifts to the mental and physical toll of medical training on residents, particularly those with disabilities and chronic illnesses, and the challenges they face in receiving accommodations. Dr. Wright shares her own recent medical leave due to ongoing shunt issues. This episode sheds light on a little-known condition and the importance of accommodating and supporting residents with disabilities.Find Dr. Jamie Wright here!https://www.instagram.com/shuntedmdphd/https://twitter.com/shuntedmdphd@shuntedmdphdThe Hydrocephalus Associationhttps://www.hydroassoc.org/ Find me on Twitter @Drkentris (https://twitter.com/DrKentris) Email me at theneurotransmitterspodcast@gmail.com https://linktr.ee/DrKentris The views expressed do not necessarily represent those of any associated organizations. The information in this podcast is for educational and informational purposes only and does not represent specific medical/health advice. Please consult with an appropriate health care professional for any medical/health advice.
AARON SKYY is a star in the world of R&B, Trap, and Hip Hop music that has garnered a lot of attention, known for his soulful voice and emotionally charged lyrics. He was born in Lynnwood, California and raised in Compton until the age of 6, when he moved to Orange County. Skyy credits being prominently influenced by Maxwell, Justin Timberlake, and Prince Jodeci. Aaron has been in the music scene since he was 19 years old. In 1997 he made his official debut with the release of his first single, The One. In the early 2000s, he signed with Red Ant Records and released his first album, Skyy's the Limit. It quickly gained attention and sold an astounding number of records for a first album. This put him on the radar of industry insiders. Singles, The One and Chocolate became massively popular hits that defined the moment Aaron Skyy came into his own. Aaron Skyy's music has continued to evolve. With the release of FREQUENCY, Skyy further proved his versatility as an artist. Skyy has toured with the likes of Maxwell, Donell Jones, and Beyoncé. While returning from his last UK tour, Aaron and his team made a shocking discovery. He had been diagnosed with hydrocephalus, a build-up of cerebrospinal fluid in the brain. In Aaron's case, it was believed to be induced by stress. This life threatening condition forced him to leave the music scene and focus on getting better. After a near-death experience, multiple brain surgeries, and a lengthy recovery, he had a changed perspective on life and music. Aaron realized that he had a greater purpose, and that his music had the power to inspire and uplift others. With renewed passion and drive, Aaron Skyy returned to the studio to create his latest project, THe ReTurn. The project showcases his growth as an artist and a person, with lyrics that are both introspective and inspiring. With a US tour on the way and additional projects in the works, expect to see a lot more of Aaron Skyy. More Info on Aaron Skyy can be found at : https://askyyworld.com & https://linktr.ee/aaronskyyunlimited RandomlyRonnieJr.com | Patreon.com/RandomlyRonnieJr --- Support this podcast: https://podcasters.spotify.com/pod/show/randomly-ronnie-jr/support
TODAY ON THE ROBERT SCOTT BELL SHOW: Vaccine debate paradigm, Vax legislation stalled, Jeff Pearson, Hydrocephalus, Danny Bonaduce surgery, Glyphosate safe levels, ADHD medication warning, Psychotic perfect storm, Kevin M. Barry Esq, Religious freedom, Informed Choice CT, NJ healthcare worker win and MORE! http://www.robertscottbell.com/natural-remedies/vaccine-debate-paradigm-vax-legislation-stalled-jeff-pearson-hydrocephalus-glyphosate-safe-levels-adhd-medication-warning-psychotic-perfect-storm-kevin-m-barry-esq-religious-freedom-informed/
Unexpected • Unpredictable • ExcitingWhen Annie White Brown's daughter was born with Spina Bifida and Hydrocephalus, she turned to her Jamaican roots and natural remedies to help alleviate her daughter's skin issues after surgeries. Her passion for herbal healing grew, leading her to develop a unique brand of essential oils, herbs, and natural butters that provided her daughter with much-needed relief.Discover how Annie's determination and knowledge transformed her backyard make-and-take parties into a thriving business. From her exploration of aromatherapy to the explosive growth of NaturalAnnie Essentials on social media platforms like TikTok, Annie's commitment to self-care and her customers shines through. Immerse yourself in her journey as she opens an in-person candle bar, where people can blend their own candles, and find out how Annie's unwavering dedication has not only transformed her family's life but also inspired others to embrace the healing power of natural remedies.Join us for an inspiring episode filled with resilience, love, and the transformative impact of NaturalAnnie Essentials in the world of natural remedies. Episode Takeaways:Annie's daughter overcame all odds and obstacles to live a thriving life.Spina Bifida is where the spinal cord doesn't meet.Hydrocephalus is a neurological disorder caused by an abnormal buildup of cerebrospinal fluid (CSF) in the ventricles (cavities) deep within the brainTiffany had four surgeries within the first month of life and had many skin issues after the procedures.Annie started using essential oils, and natural shea butter - making her own concoctions. Aromatherapy certified - This is where she learned to create her own formulas.This led to make-and-take parties in the backyard.During a popup show customers were asking for candles and this became the new path for NaturalAnnie Essentials!Scents put you in different moods.NaturalAnnie Essentials is the sole income for Annie's family.Annie built her business via Facebook, Instagram, and pop-up shops. In 2020 she started TikTok and then things really exploded.Mid-2020 Annie needed studio space because it could no longer be housed at her home. This eventually led to the in-person candle bar where folks can have candle-making experiences and blend their own candles.Annie reserves one day a week just for herself. This helps her stay centered and not get too overwhelmed. She also sets mornings aside for herself - sitting, relaxing, and being still.Celebration is all about quiet time for herself!Charity: The Ronald McDonald HouseConnect with Annie: naturalannieessientials.com and on TikTok If you've been inspired, touched, entertained, or motivated by this or any of Heather Vickery's content you can “say thanks” by buying her a virtual coffee!Let's connect ...Follow us on Instagram and connect with our host, Heather Vickery here.ORDER YOUR COPY OF F*CK FEARLESS - MAKING THE BRAVE LEAP TODAY, Click Here!Order your Create Brave Manifestation Card Decks here.Share your feedback by emailing heather@vickeryandco.com or via Instagram DM's.
Katie along with co-host Mijha from Jambo books interview Dr. Kate Lund, TedEx speaker, clinical psychologist and hydrocephalus warrior. She brings an incredibly important perspective as provider, patient and parent. Dr. Lund shares with us how the support she received throughout her childhood had a positive impact on her life and journey with hydrocephalus. From her wise words and experiences, you will leave this episode feeling empowered with actionable things you can do today. This message is so inspiring. [4:00] Mihja shares about her daughter [5:44] Dr. Kate introduces her self [8:05] Wally, the Facility Dog [9:36] Discussing support she received as a child [11:24] Working hard put her ahead of the game [13:00] Focusing on what you can do [14:19] Diagnosed with hydrocephalus when she was 4 [15:53] Finding out she had 2 different kinds of tumors [17:15] A Child Life Specialist became her friend during a hospitalization [20:50] Katie shares how it is a choice who is in your room [23:12] Modeling interactions for our children [25:54] Understanding and appreciating differences [27:46] The stakes are high with parenting [29:19] Be open to connecting with your child's experiences [31:25] Watching your child's passions emerge [34:30] Helping your children find their happy place [35:50] Communicating your child's needs [38:24] Finding her voice [40:00] Sitting with you reality Connect with Dr. Lund Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
In honor of Mother's Day approaching, today's podcast is a story full of God's peace, presence, and faithfulness to the cry of a mother's heart. Jamie Johnson, from our community group in Homewood, Alabama, shares her story of walking through the diagnosis of congenital hydrocephalus in her unborn son and how God held her head above the waters of suffering and pain. Jamie will remind you that no matter what circumstances you are walking through today, the faithfulness and goodness of God will see you through to the other side. IN THIS EPISODE YOU WILL LEARN: * God's faithfulness is not based on your circumstances… His faithfulness it's based on Christ and the cross. * God assures us that we will have pain in this world, but He also assures us that He is with us * The frustration you have with the painful circumstances in your life does not scare God - He wants you to come to Him with your groaning. FOR OUR PATREON INSIDERS THIS FRIDAY! We are so excited to have Jamie featured in a “Story Within the Story” episode this month! Listen in as Amy Grote talks with Jamie more about how Prodigal Pottery got started, how Oliver is doing today, and how the past few years have shaped her faith. Not an insider? Join us today at www.Patreon.com/STLcommunity Support STL Ministry Order When God Shows Up - Stories of FREEDOM
Hydrocephalus isn't as widely-known as Parkinson's or Alzheimer's, although about one million Americans live with a diagnosis. And because of this, sharing the stories of those who live every day with the condition makes what was once invisible, visible.Amanda Garzon is the COO of the Hydrocephalus Association. The work of sharing people's stories, connecting the community, and advancing research is close to her heart. Amanda received the diagnosis for her daughter after spending their first 90 days together in the hospital. For Amanda, her strategies about expanding reach and engagement center around empowering and serving her community. But she also believes that there are things to learn from the for-profit world. She said, “We have to think like a for-profit because we are selling this incredibly valuable service, for free! So even though we aren't measuring our profit margins, we are selling ourselves. And it is priceless what we are selling.” Bio:As the Chief Operations Officer, Amanda is responsible for developing and implementing operations strategies that allow the Hydrocephalus Association (HA) to meet its strategic goals and vision. She works in partnership with the CEO and management team to find innovative ways to grow revenue that support the diverse research and patient-focused programs of the association. She oversees the development and oversight of education and advocacy initiatives, patient-centered support services as well as the management and implementation of an aggressive communications and marketing strategy. Amanda's passion for the mission of the association stem from a personal connection to the condition as the mother of an adult daughter with hydrocephalus. In her spare time Amanda enjoys being a mom of two wonderful daughters, yoga, evenings with good friends and food, and leading her high school daughter's Girl Scout troop.Guest links:Amanda's LinkedIn profile: https://www.linkedin.com/in/amanda-garzon-646b408/ Hydrocephalus Association: https://www.hydroassoc.org/ Additional links:SickKids: https://www.sickkids.ca/ Michael J. Fox Foundation: https://www.michaeljfox.org/ Cystic Fibrosis Foundation: https://www.cff.org/ Parkinson's Foundation: https://www.parkinson.org/ Advocate like a Mother: https://www.advocatelikeamother.org/ Playlist:Live Like We're Dying by Kris Allen1979 by The Smashing PumpkinsPeace by O.A.R***Hosted by the brilliant team at Feathr.Feathr is the nonprofit marketing platform designed to help mission and member-based organizations build purposeful connections with their community to grow impact with confidence.Special thanks to our producer, The Good Podcast Co, and to Feathr's very own Max Anderson, who wrote and performed our theme song.
How do we talk to kids about children who have differences like spina bifida, fragile X syndrome, autism, or who are deaf or blind? Many times when children ask, out of curiosity, about a child's difference that they see on the playground, at school or in a store, some adults are quick to shush that child out of fear of embarrassing the other child, the other parent, or themselves. It can catch us off-guard and we may not know what to say. In chapter 5 of my book, which is on talking to kids about diversity and inclusion, I highlight one of my very best friend's children, Nate, who has Cerebral Palsy and Hydrocephalus, and is now a teen who is happy to tell you about his differences—but it's not always that way—so how do we talk to our children, when they DO have a difference, about that difference so that they aren't ashamed and they know that it's simply part of what makes them who they are-- but not all that they are. For this, we are talking to Beth Leipholtz. The post How to Talk to Kids About Differences and Inclusion with Beth Leipholtz appeared first on drrobynsilverman.com.
On this episode, Savannah shares what it means to have wreck-less hope. Through her traumatic birth, having micro preemie twins and receiving a cerebral palsy diagnosis for one of the twins, Savanah explains how her twins have changed her outlook on life and how she cherishes the little things life has to offer. Savannah opens up about maternal mental health and how it affected her. It is her mission to help other moms experiencing a traumatic brith feel not alone through the gift of artwork and support. [4:05] Introductions [4:55] Stories of hope [6:47] History of pre-term labor [7:29] Going into labor at 24 weeks gestation [8:34] Journaling became therapeutic [11:32] Finding out both boys had brain bleeds [13:00] Cerebral Palsy and Hydrocephalus diagnosis [14:45] Leaning on each other and family and friends [17:00] The answers to the hard questions [20:00] The shift of worry [22:30] Charm and Wit of Lochlan [25:29] Staying in the present [27:05 The strength within came from [30:30] Cards of hope for mothers who experienced a traumatic birth [31:27] Survival mode [36:00] Caregivers needs the proper help [40:21] Beads of Courage Connect with Savannah Website Instagram Additional Resources Dear NICU Mama March of Dimes Hand to Hold Beads of Courage Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.
Review of nuclear brain imaging concepts on seizure, tumor, brain death, and normal pressure hydrocephalus imaging evaluation. Check out the free study guide on this topic at www.theradiologyreview.com. Prepare to succeed!
Granger Smith Podcast Episode 164: It's difficult to have your child in and out of the hospital. This child in particular has had 20 different brain surgeries. The best way to deal with this struggle is to fall down at the knees of our creator. Join me as we chat about this topic and more! New podcast every Monday morning! Ask me questions! #GrangerSmithPodcast or email me at grangersmithpodcast@gmail.com