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For Sickle Cell Awareness Month, our sickle cell Patient Voice Group discuss their lived experiences with sickle cell, shedding light on how organisations need to be considerate when engaging with patients. They emphasise the need for genuine engagement and transparency from researchers, while highlighting the importance of building trust within communities that have historically been overlooked. The discussion looks to the future, advocating for more personalised support, better treatment options and a stronger focus on the diverse experiences of those affected by sickle cell. Marie Nugent, Community Manager for the Genomics England Diverse Data Initiative co-hosts this episode with Natasha Gordon-Douglas, sickle cell patient advocate for the Genomics England Diverse Data Initiative and Lead Mentor at the Sickle Cell Society. They are joined by Oleander Agbetu, who cares for her son with sickle cell, and is also a member of the Solace sickle cell and thalassaemia support group board, and Jayson Kupoluyi, sickle cell advocate and volunteer for the Sickle Cell Society. The episode also features insights from some of the other members of the Patient Voice Group; Hazel Attua, Samuel Chuku and Zainab Garba-Sani. The Patient Voice Group are a group of people affected by sickle cell who share with Genomics England their expertise, based on their lived experience, to inform our sickle cell programme within the Diverse Data Initiative. "If we as parent/carers and advocates and all the rest of it can even make a little slight difference to someone's care, that's what I want to do. That's why I'm here." You can read the transcript below or download it here: https://www.genomicsengland.co.uk/assets/documents/Podcast-transcripts/How-can-organisations-support-those-living-with-sickle-cell-1.docx Marie: Welcome to Behind the Genes. Natasha: I think the fact is that people do want to hear from patients, and they do understand that actually you need the patient's voice in order to make things better, and not just be in a room where you've got all board members that think, “Okay, this is what is good for the patient.” No, actually, they've got the patients there to help support that voice, and saying, “Well actually, this is the reality,” rather than what you think might be the reality. Marie: My name is Marie Nugent and I'm the community manager for diverse data at Genomics England. I'll be co-hosting today's special patient takeover episode of Behind the Genes with Natasha Gordon-Douglas, who is a member of our sickle cell patient voice group. On this episode, we're going to be speaking to two people who are also part of our patient voice group, Oleander Agbetu and Jayson Kupoluyi. Today we'll be discussing what it's like to live with sickle cell, and how organisations who wish to engage with patients need to be considerate of what is going on in people's lives, and what good advocacy and support for patients who want to be involved in research looks like. If you enjoy today's episode, we would love your support. Please like and share, and rate us on wherever you listen to your podcasts. Welcome everyone, thank you very much for your time today to talk about the patient involvement and engagement work we've been doing as part of our sickle cell and genomics programme at Genomics England. My name's Marie, I'm the community manager for the diverse data initiative, and I am really involved in doing the sickle cell engagement work. I'm going to pass straight to Natasha now, who's going to be my lovely co-host for this podcast. So, over to you, Natasha. Natasha: Thank you, Marie. I'm Natasha. I would say my background is nothing to do with the medical side. My background is in marketing and the corporate world. That's how actually I got introduced by John James, because I actually got him into our workplace to do a podcast about sickle cell. So, you know, just – I'm working in an environment, which obviously – it's about people understanding about my illness, so I actually got him in speaking, and then he mentioned about a project, “Oh, you might be interested in this.” So, that was kind of the introduction I got from John James. But as I said, doing patient work and engagement stuff was completely new to me, so this is my – I'm a rookie, I should say. But I feel like now after the two years, I know now, I understand [laughter]. But yeah, that's kind of a quick background. And how I got introduced to Marie is from John James at the Sickle Cell Society. Marie: Great, thank you, Natasha. So, coming straight to you now, Oleander, I think it's a bit different for you. So, you joined this particular group not too long ago, but from what I know, you've been doing this kind of advocacy work and engagement work for quite a while. So, tell us a bit about yourself. Oleander: Well, I'm a parent/carer of a teenager, young man with sickle cell, and I think I've been part of the Solace sickle cell and thalassaemia support group board for more than ten years now. And what we do is we support patients through our WhatsApp group, as well as through inviting different people to come and talk. We've had doctors, nurses, etc. And I have supported people who have called me personally to ask me questions, from advice, for help. Also written a letter to the hospital, which we are now working on with the hospital itself, to try and get things moving and make improvements for the patients who are actually patients there at Homerton Hospital and Royal London Hospital. Marie: And then over to you, Jayson. So, similar to Oleander, you joined this group fairly recently actually, but just tell us a little bit about the kind of work that you've done before. Jayson: My name's Jayson Kupoluyi. My background is totally different from the sickle cell background. Because of the plight that I have with my health, I now decided that I wanted to make a change, so I – unbeknown to me – I didn't know what advocacy was. I just – when I meet people, I ask them questions, and, you know, thankfully enough, they really try and help and support in terms of advising me and those kind of things. So, I took that advice on board, and through the years I've met fantastic people, i.e. Oleander and her son. I met her son during a trip – we took the kids to a trip for a week for self-discovery, self-awareness, teaching them how to cope, and probably to see where – you know, try to make them open up. So, I now decided to volunteer for the Sickle Cell Society and give them seven years of my time, in which I've met fantastic kids and fantastic people. And through that, I've learnt to be able to teach people and the kids under 16 – well, I'm teaching from 26 year olds down to 13 year olds on how to advocate for themselves in hospital now. I teach the adults how to fill in application forms for PIP. I also write complaint letters and help them deal with complaints. And I also – sometimes I have the chance, from Royal London and Queen's Hospital, to enter and view the situation, and ask information from the patients, from the nurses, carers and things like that, to be able to compile my own findings. And all in all, it's been rewarding, because I just wanted to give back. Marie: That's incredible, you know, because something that we've been talking about more recently as part of our sickle cell patient voice group is this idea of advocacy, and I'm just reminded that I'm with a great group of people to actually explore this because of the experience that you've got, so this is wonderful. Now, you've all just said you've got varying like degrees of previous experience of being part of advocacy work. Natasha, I'll come straight to you, what were your initial expectations as to what it would mean or look like to be part of like a patient voice group? Natasha: To be honest, very sceptical [laughter]. I was like, “What are they really going to – are they really going to take our voice on board, and is it just another tick box that they could say, “Okay, we've funded a group for you to – with sickle cell,”” and I was very, yeah, sceptical. But actually I would now advocate for everybody to be part of a patient voice group. I think it's so important. And the collaboration that happens with all these different organisations as well that you open up your mind to – ‘cos I didn't know – you know, especially for this particular project that we're working on, you've got the James Lind Alliance, never knew this organisation existed. I think the fact is that people do want to hear from patients, and they do understand that actually you need the patient's voice in order to make things better, and not just be in a room where you've got all board members that think, “Okay, this is what is good for the patient.” No, actually they've got the patients there to help support that voice and saying, “Well actually, this is the reality, rather than what you think might be the reality.” So yeah, I would definitely champion anybody regardless, even – yeah, you've got sickle cell, of course, but any kind of illness, if there's any kind of projects, trying to get involved, to really be able to try and shape what can happen. Because, you know, I guess what we're working on at the moment, the opportunities for development within sickle cell are endless. And yeah, it's just being part of that steering group, part of that voice to actually make change, especially with sickle cell. You know, it's one of the ones that has never had anything – hasn't had change for I don't know how many years - I'm going to give away my age, for at least 40-odd years, I'll say [laughter]. But yeah, so from what I can see, it's slowly now changing and we're in that wave, and I'm so excited to be part of that. I know Oleander, so you with your son, you've obviously seen the kind of – if there has been change for you. I guess for me as a patient, I might see it slightly differently, whereas you as a carer, a parent, you might see it completely differently. So I guess for you, what would you say for a person who might be considering joining a patient group or a parent/carer group? Oleander: I too was sceptical at first, but at the same time I can say that I'm really happy that I have been involved, because it means that all the information that I find out about that might be relevant to other parent/carers, I can pass that on, and vice versa. Any questions that they might have or issues that they might be going through, I can also get those considered. And I just think that it can be quite sad when a patient goes into hospital and they are on their own, they don't have anyone with them. And so for me, for example, when my son was in paediatrics, and I'm sure the two of you would also know that, the treatment is just very different to when you become an adult. I could see from my son's face, he just was not impressed with the adult care at all. And he more or less says, “Mummy, I'm not coming back to hospital unless it's really like a dire situation. I just don't want to go back.” And that's quite sad because really we're supposed to be able to support our loved ones in hospital. When they need the care, they absolutely need the care. I actually spoke to a parent today of a young man in hospital right now. His PCA was failing, which is, you know, the pump that gives the medication, right? And they actually asked her, “Is he still in pain?” If he's been put on a PCA, how can you ask that question? So, you know, it's so good that she was there to advocate on his behalf. He couldn't even talk. And, you know, I know for my son also, when he's in really, really deep pain, he stops talking, just doesn't talk. And if he's there by himself, it's a real issue. And so, you know, I think from that point of view, all of these kinds of stories are really important to bring to forums like this, so that people can understand that of course, yes, it first affects the actual patient themselves, but it has a knock-on effect for the families, and the carers and the people that are involved with that person's care. So, if we as parent/carers and advocates and all the rest of it can even make a little slight difference to someone's care, that's what I want to do. That's why I'm here. Marie: Thank you so much, Oleander. I think that's a really powerful story as well, and it just shows so – I couldn't help but think, as you were talking there, about this idea of – we use the word community quite a lot in this kind of engagement space, but I must admit, you know, I've been working in public engagement with health and research for well over ten years, and I must say that I really felt the sense of community in this sickle cell space, particularly with patients and the wider sort of community, and that feels like it's a really important part actually. And it kind of speaks to what Jayson mentioned about, you know, he's now reached this point in his own life where he wants to be actively kind of contributing back to the community. So, I'll come to you now, Jayson. Again, what was your expectations about joining a group like this, and what were you thinking when you joined? And how has that maybe transformed now? Or potentially not? How has your experience been so far? Jayson: It's been great actually, pleasant people, likeminded people working towards a common goal. When I first heard about this group, I said to myself, “Do I have space for another WhatsApp group?” It's not because I don't have space on the phone. It's because getting calls in the middle of the night at the same time – and you can't turn it down sometimes, especially if it's in the family, ‘cos I have these people – I have - you know, it's in our family and it's very, very rampant. And when you say community, you can have a mother of your nephew, your niece call you, knowing fully well that you've gone through that, this sort of thing, what's going on, blah-blah-blah, “Okay, this is what you need to do. This is what you need to do.” Then getting to the hospital is another ballgame, do you understand? And you just have to say, “Okay, you know what, if I take a moment of my time and say, “I'll see you in the morning…”” I've had two incidents that I didn't make it, and it's a guilt trip to me, because I was thinking, “Hold on, if I had gone…” And then I was okay – if I wasn't feeling okay then, yeah, but I was okay. I was just tired. And when I started, I was a one-man band, and I realised the last 20 years that it's definitely not going to work, hence the community comes in. And the time I tapped into this community, I met people – “Okay, so, you could help me out, you could help me out, you could help me out.” And the more I meet people, the more my voice goes bigger, louder and reaches more people that I want to reach. So, when I first met Hazel, she was in pain, so I called her and I was like, “Madam, you don't know me, but I know that you're in pain, are you okay?” And she goes, “No, I just wanted to sit down.” I just sat down beside her, didn't speak to her, just sat down, and she didn't utter a word, but she came to a conference and I'm thinking, if you're in pain, you know, okay, I'm the same – I just started explaining myself to her, “I have this, I've gone through this,” blah-blah-blah, and she was looking at me and she was like, “You don't look like (inaudible 0:15:54).” So, meeting and coming to this group, my expectation was a bit elevated actually because, when I was speaking to Hazel, she said, “No, Jay, seriously, you need to be in this group because we need the other…” And I was like, “Not another one,” and blah-blah-blah. Hazel said to me, “Can you join the Solace group?” I was like, “Who's in it?” She goes, “Oleander.” I was like, “Oleander's good.” And everybody keeps on calling me, and I do appreciate that people want my advice sometimes, but this health is very precious to us. I am looking forward to greater things with this group. I am looking forward for us to reach some targets, some funding, some people out there, to be able to change so many things. And any time I see a sickle cell person in good health, no pain, no nothing, I give myself thumbs up. You don't want to see anybody in that kind of pain, and people don't recognise or have that empathy to share or say, “Just another sickler.” Sickler, that's a word, hmm, I don't like it. So, whenever I go to hospital, Queen's or Royal London, they know, “Jayson, are you here to cause problem?” “As long as you answer the question, I will be fine. As long as we're okay, I'll be fine.” And, you know, we're now friends. In the midst of adversity, we're now friends. Marie: There is just so much I think in what you've just said, and I think that again something that I'm really struck by – so obviously, you know, I don't come from any lived experience. I didn't have people in my life that I knew that had sickle cell before starting to work on this as part of my job. And something that I'm really struck by is, first and foremost, from the No One's Listening Report, the quite staggering evidence that, as a community of people, people living with and affected in some way by sickle cell are very neglected, and there's all sorts of complex layers of like challenges and difficulties that people have to deal with, and it seems to come from all sorts of places and all sorts of kind of parts of life. I was just really struck by this really daunting situation actually to be put in. As someone who's part of, you know, let's be honest, quite a sort of – maybe quite far down the road in terms of direct benefits, like piece of work – so we're here, I'm part of an organisation that is interested in supporting research and providing good quality research data, and research is a really important part of this whole system, but again it's something that maybe will take five, ten-plus years before you're seeing any direct benefit from in terms of the data that we're creating. But something that I'm really struck by is this idea of, if we know that there's going to be maybe a bit of a delay in the kind of benefits that we can bring to patients through the data that we're generating, how can I try and build in as much benefit right now for the people that we're engaging with and we can bring into this work right now? And that's something that we've talked about and we're about to initiate a bit of a project around exploring a bit further, but I just wonder if I can now come to you all and get your thoughts on what can organisations like Genomics England or other research based organisations – what in your view does being a good supporter or a good advocate for people living with sickle cell – what could that look like from a research organisation in your view? I'll come to you first, Oleander. Oleander: I think a really massive thing is to support the removal of barriers. There's so many people who would love to get involved with this, that and the other, but actually the barriers are there and the barriers are real. Even like from a personal point of view, the thing I was interested in attending, I can't. It's just not within my means. So, things like that are really important, because most people who are living with sickle cell, we are from marginalised groups. We're from groups that are not known to be flushed, and we need the support from – you know, if you really want our help in terms of research and so on, we absolutely need your support and your help to provide you with that research and that help. So, it's real. Giving someone a £20 voucher is nice and dandy, but actually if they've had to pay for whatever, accommodation or travel costs and all these things, they're out of pocket before they even start. Marie: Yeah, this is something that we've been talking about recently, isn't it? I know that organisations like ours do want to do better, but sometimes there's just that not quite as good an understanding as to what these barriers really look like for people. Over to you, Natasha, what do you think about that? Natasha: There's a couple of things I wanted to pick up on. One is definitely, yeah, the barriers. It's funny, I was at a hospital this morning and I was talking to one of the consultants. He asked me the question, which I thought was quite weird, but he asked me, “Why do you think that sickle cell patients have to pay for prescriptions?” Like that alone, prescriptions, we're on medication forever, you know, from the moment you're diagnosed, which for me was at six months, so in my entire life, and you're paying for prescription, that's going to keep happening over and over, and you're just – you know, there's people, because of their sickle cell, they can't work. There's, you know, barriers of not being able to work. And then you've got potential – you apply and say your disability, and sometimes that's not even taken on board either. So, you've just got these barriers in place that just make living day to day so exhausting, so tiring, and basically you're fighting those barriers at every – you think you've passed one, you've come onto another. And I guess also the research side, which – it's funny because I would say, when it comes to research, it's fantastic, yes, that organisations like yourself are looking into it, but actually sometimes it's not even – you can't make the change where it's going to matter immediately. It's literally the frontline, you go into hospital and A&E, that's your first barrier is trying to just get some pain relief or get any treatment. You're sitting there for four hours. Four hours in pain for a person with sickle cell, that can really, you know, make things worse. And that's the kind of – you kind of want the immediacy – like the frontline, those kind of things to change. And of course, yes, we do want more research and we do want people to take part, but it's those things where you might not necessarily have the power to make those changes immediately that people will be willing to take part in research like this, because you can't even just get the treatment that you need from the moment you step into a hospital. That's kind of what I was thinking of as you are speaking about this. I'm like, you know, yes, this is great, but we just need sometimes just going into hospital to make it easier. Like what Oleander said, it's unfortunate that the persons being asked about their PCA, if they're in pain – well, what do you think? Like that's just the basic [laughter], you know. It's kind of like, how can you ask that question and you're a healthcare professional being on the frontline? And that's the worst. It's the frontline staff sometimes which actually need the education. So, some of this research, it needs to go to education in these staff actually, you know. That's maybe an area that needs to be sorted. Marie: For me, I completely have a whole new deeper appreciation for almost seeing people as the whole, how you work with the person. And it's never been clearer to me - as I say, you know, in ten-plus years' experience of doing this kind of work, it has never been clearer to me how important that is than now I work on sickle cell and how important that is. And I think that actually you've touched on a really important point there, which is that, you know, I know for sure that there's incredible work going on through NHS England, through the inequalities workstream and in response to the No One's Listening Report. There seems to be, you know, a huge increase in sort of focused action being taken to address a lot of these challenges that are being brought up in our conversation now. But actually, what you said, Natasha, did kind of really hit the nail on the head a little bit for me, which is that actually we kind of still look at this as kind of separate organisations, like, “Well, this is my bit and that's your bit, so you stay over there.” And I think that something that we're trying to start working towards through the Sickle Cell Society is actually how do we bring together a better sort of alliance of work and of people who are across research and healthcare, because these things feed into each other, right? So, how can we do better to sort of show that we are all aligned, that there isn't just this one person or one group over here looking just at this little bit and then there's a completely separate group, that we are all actually united in our, you know, intentions here to really improve the lives of people that are living with this condition. But of course, there's just so much work to do, isn't there? I think that's another overwhelming thing, that everything needs to be better when it comes to sickle cell. Oleander: The thing I wanted to just add to this whole talk about what researchers can do in terms of supporting advocates, etc. Two things, understand that there is an issue for trust from our communities, because we've been burnt. And the second one is, we need transparency. So, be real when you talk to people about the information you're gathering, what you're going to do with it, how it's going to impact the research, timetable of whatever's happening, all of those things which will help people to gain more trust. Natasha: Yeah, Oleander, that's so – yeah, I think definitely, that's been echoed throughout this whole project, hasn't it? It's always about gaining that trust, because it is a case of, is this another where we're going to have support and we're going to be let down, or, you know, lied to, whatever you're going to find out. And trust is a huge part of that, definitely, yeah. I think, yeah, definitely. Thanks Oleander for saying that, it is. Marie: Yeah, thank you all. So again just to say that I'm always blown away by just how generous you all are actually with what you say and with what you share, and with the messages that you're ultimately trying to get across. And it's very humbling, you know, to be able to work with you all, ‘cos you all are so incredibly passionate and driven, despite so many challenges, and it is nothing but inspiring. So, I can see absolutely why, you know, people living with sickle cell, for example, are called warriors, because you need to have that sort of fighting spirit to just keep going, and I have nothing but, you know, boundless like respect and admiration for people who are able to do that and contribute to the community in the ways that you all do. And I just think that again, you know, so talking now back to this idea of how research is set up, you know, I myself am part of an initiative that's been, you know, initiated and only kind of guaranteed funding for this kind of iteration, for three years. It's very difficult to sort of initiate and establish really good long-term relationships, and have like a longer term strategic sort of way in which you're bringing in people and taking that long sort of like approach to building relationships, but it's something that I've tried to be really mindful of actually, and to address a lot of the things that you just mentioned. You've heard us refer to other members of our patient voice group. Let's now take a moment to hear from them. Samuel: Hello, my name is Samuel and I'm from Leicester. I have had the great privilege of working with some amazing people in Genomics England over the last few months, to hopefully one day be a part of something that takes down this condition that I struggle with known as sickle cell. Since John James of the Sickle Cell Society introduced me to Marie from Genomics England, there has been a door opened where the voice of a person dealing with the condition matters and holds weight, to help know what is required to further improve matters for people dealing with said condition. Hopefully, after reading the blog and hearing this podcast, you will know more about the work we've been doing, and feel as encouraged as we do. We don't just want to stop here. There's a long way to go, and we need all the help we can get to reach our goal together. Hazel: Hi everyone, I'm Hazel. I hope you enjoyed the podcast. Now we're not done just yet. Keep your eyes out for our sickle cell and Genomics England patient takeover blog, where Natasha, Sam and I take you through what we've been up to and the future of genomics. Zainab: Hi, my name's Zainab and I co-chair the Genomics England diverse data advisory board. I also have the pleasure of being part of the patient engagement group for this important piece of work. I've been a sickle cell advocate since before I even knew what advocacy was. As a child with sickle cell, I was exposed to different ways to help the community pretty early on, and have loved working with others to transform care for the better. Today, I hold a number of advocacy related leadership positions, including being a trustee of the Sickle Cell Society, chair for NHS England's patient advisory group for sickle cell health inequalities improvement, and a member of faculty for Medscape's committee on rare diseases. I also contribute to global sickle cell policy, practice and research. I'm super excited about the work we do with Genomics England because I think they're a blueprint for what good patient centred work really looks like. My background is in health policies specifically related to research and innovation, so to see sickle cell being prioritised in this space is really special to me. We have an incredible opportunity to advance equity through research and innovation, especially related to genomics, and I myself am lucky to experience the transformative power of regenerative medicine. I'm excited for this group to continue to advocate for and enable better access for such incredible science. Marie: We're very lucky to have such a wonderful group of people who are part of our patient voice group, and I hope you enjoyed meeting them. Just going back now to sort of what can be achieved, and if we, say, come back together in a year's time, knowing the kinds of things that we've just talked about briefly that we maybe want to look at – we've mentioned things like doing more family sessions, looking at how we can engage young men in particular, doing what is needed to kind of give that really strong message about how you support people to be part of these kind of patient advocacy roles. But what would you really like to see that we've achieved together by say this time next year? I'll come to you first, Jayson, this time. Jayson: Thank you very much. Going straight to the point, I would like us to have more one to one with the patients and family in terms of – mainly I think to move towards the male, because, you know, I'm a living experience of some of the things that's happening, and put the awareness out there, and let them know that – not to scare them, but to give them adequate information to be able to arm and tool themselves for a better life for themselves, a better respite for themselves, and a better understanding of the situation. I know if sickle cell patients have enough time at work, at uni, at school, during their exams, they will achieve great results, and I would want that to be one of the forefronts of this campaign, to make sure that, you know, the male side – I do know a bit of the female side but I'll leave that to Oleander and Natasha, but the male side of what they should expect, and how to – if I could put this in (inaudible 0:33:59), I am making myself a role model for them, because I have leapt over barriers and over so many expectations, and if I could do it, with the science and the support we have now, they can double it, they can triple it, they can do more. My journey hasn't ended yet, but before it does, I want to tap into every organisation to hear more voice, to just give me five minutes to hear my voice. Marie: Thank you so much, Jayson. I can't think of a better role model for young men who are dealing with this than you, so it's brilliant to see your dedication to that. Over to you, Oleander, what would you like to see – if we're here together in a year's time, looking back on what we've done over the last year and what's been achieved, what would you really like to see? Oleander: I'd like to see sickle cell actually being taken seriously, that people don't make assumptions that, “Oh, it's just a small, you know, blood thing, it's nothing that deep, nothing that big,” whatever. Because the reality is, for a lot of indigenous people here, the majority ethnicity in this country, sickle cell is spreading because more people are mixing, more people have come over, refugees, economic migrants, etc, and mixing, and so they will find that actually it isn't just a tiny minority of people. We're told it's 17,000 people in the UK, but actually that number's going up. So, you know, it is a bit of a shame that it takes it to affect the ethnic majority in this country that anything would change, however this is the reality we live in. So for me, that's what I would like to see, that sickle cell is taken seriously, that we're not just stuck with one or two authorised drugs for people living with sickle cell, and actually one of them is not even a sickle cell specific drug. So yeah, we want sickle cell to be taken seriously, and so that people can actually trust the process and trust the people who are genuinely trying to research issues to do with sickle cell, so that we can make the difference that we need to make for people's lives. Marie: Thank you, Oleander. That just reminds me that, you know, hopefully – so, one of the projects that you are also involved in that we're doing is – and that's been already mentioned, the James Lind Alliance and the Sickle Cell Society partnership that we've got, the priority setting partnership. Hopefully, one of the things that's part of doing that is that we do create that sort of focused priority areas, and that's really strongly centred on the voices of people living with the condition, supporting people with the condition, whether they're parents, carers, healthcare professionals. So yeah, I completely agree, you know, really putting it on the map, taking it seriously, raising the understanding, raising it as a priority, I think that would be great to see in a year's time for sure. So of course, last but not least, over to you, Natasha. Natasha: Well, Oleander has literally taken the words out of my mouth. That is exactly what I would want to see in the next year, and to me, it can be done. There should be no reason why it can't be, with all the technology, with all the advancements that's happening. There is no reason why sickle cell should not be leaps and bounds with the information, with the project, of getting this information from sickle cell patients. It should come to a point where actually no one has to suffer from sickle cell because, you know, the – what's it called, the medication, that one that's recently come out, that's way overdue. I can't even believe it's taken this long to just come up with that one, you know. The stem cell treatments and what they give as an alternative, it's not good enough basically. And, you know, we had this new one come out – I say new one, but this hydroxycarbamide, it's like that wasn't even for us. It was all by mistake that, “Oh actually, this might help sickle cell, let's see.” And that's what's the afterthought, and we shouldn't be an afterthought. It should be a priority. And yeah, having that priority setting that we're doing with the James Lind Alliance – it's funny, ‘cos I remember, we had a call in our patient voice – I think he mentioned – I think it was something about maybe the questionnaire that we were going to give people, or – I can't remember the particular thing which I said to you, you're having trouble – you know, we're underrepresented, there's no data on us for a reason, and you had a template, and it's like this template's not going to work, because you have to approach it differently. Like you have to literally rip it up and start from the very beginning, because what you've tried to do in the past hasn't worked, or, you know, the majority of people, especially in the European world, it works for them, great, but you're coming to an underrepresented community and you're thinking, “Oh actually, we can just use that thumbprint and put it on this.” No, you've got to start again. And I think it brings the importance of actually taking part in things like this, is that without actually knowing this, you would have thought, “Oh actually, people just aren't interested, you know. Patients don't want to know. They don't want to give any information over to us.” But it's like, well no, it's not that at all, it's just that you need to approach us differently. You need to, you know, understand what actually we're going through before you can then try and fix anything or provide information, or get, you know, medication advancements. Like these things need to be done and the groundwork first, and not thinking, “Oh okay, we can just put a little plaster and that'll heal that.” So for me, definitely, more options when it comes to treatment. And, you know, that we're not the minority when it comes to data. Because especially with sickle cell, it affects different people in so many different ways, and they're just trying to understand, “Oh, why does it affect this person this way but it hasn't done it in this person?” And it's just like, great, you're asking these questions, but now let's move it forwards. Like let's not keep talking and let's start the action. And that's probably one of the other things is, I want to see the action. It's the action now. You know, of course, if you want us to talk, we'll talk, you know. We won't stop, and we can keep going. But ultimately let's actually have some movement. Let's have an action that you're – I say you as in you as an organisation, but wider, everybody that's part of the process comes and says, “Look, this is what we've been able to achieve.” And, you know, then you know you have been listened to. A bit like Jayson said, you know, still not listening. Actually, now you can say, “Yes, we've heard and now this is what's come from it.” So yeah, that's probably I think for me the biggest utopia is that actually sickle cell just won't exist. It's done. They've been able to sort it out [laughter], it's no longer an issue at all. But yeah, we won't get to that next year, but, you know, hopefully eventually down the line there is that cure or change that they can do. Marie: I think for me, it kind of just brings me back to this point that there needs to be a united front in terms of like dealing and addressing with this. And also importantly, it needs to come from the community itself in terms of setting the priorities of what is done now, what is immediately needed to be done now, what can be looked at maybe a little bit later down the line, as there's maybe a bit more information, a bit more understanding, a bit more knowledge to kind of maybe base some things on. But yeah, every time I hear, you know, people speak about all the various challenges that, you know, of course, come from their own lived experience and having to see how this affects their community, and yes, there are steps being made in the right direction, but I think we all probably agree that we could all probably be doing more to just improve the way we're uniting this work, and we're doing it in a way that is really coming from the community themselves and saying, “We want this to happen now and in this way, and this is what we want you to look at addressing.” We'll wrap up there. Thank you to my co-host Natasha Gordon-Douglas, and guests Oleander Agbetu and Jayson Kupoluyi for joining me today as we discussed engaging people with lived experience of sickle cell in research and advocacy. If you'd like to hear more about this, please subscribe to Behind the Genes on your favourite podcast app. Thank you for listening. I've been your host, Marie Nugent. This podcast was edited by Bill Griffin at Ventoux Digital, and produced by Naimah Callachand.
This week Dusty Slay takes a seat in The Wayback! (“Workin' Man” on Netflix, “Nateland” podcast and “We're Having a Good Time” podcast). Dusty gets nostalgic about growing up in a trailer park, family trips to see Nascar at Talladega, and the time he tried to raise money to bail a friend out of jail. Ryan and Dusty then trade stories about all the fun they had with pets growing up, and the glory days of house parties without parents. CATCH ME ON TOUR https://www.ryansickler.com/tour Austin, TX - Sep. 13th Dallas, TX - Sep. 14th La Jolla, CA - Sep. 20th & 21st Salt Lake City, UT - Sep. 27th Denver, CO - Sep. 28th Chicago, IL - Oct. 11th & 12th Detroit, MI - Nov. 8th Minneapolis, MN - Nov. 9th Madison, WI - Nov. 15th & 16th Portland, OR - Nov. 23rd Ft. Lauderdale, FL - Dec. 6th Tampa, FL - Dec. 7th Tempe, AZ - Dec. 20th and 21st SUBSCRIBE to my YouTube & turn notifications ON! https://youtube.com/@rsickler SUBSCRIBE TO MY PATREON, The HoneyDew with Y'all, where I Highlight the Lowlights with Y'all PLUS get audio and video of The HoneyDew a day early, ad-free at no additional cost! It's only $5/month! https://www.patreon.com/TheHoneyDew If you or someone you know has a story that has to be heard, please submit it to honeydewpodcast@gmail.com GET YOUR MERCH! https://shop.ryansickler.com/ http://ryansickler.com/ https://thehoneydewpodcast.com/ SUBSCRIBE TO THE CRABFEAST PODCAST https://podcasts.apple.com/us/podcast/the-crabfeast-with-ryan-sickler-and-jay-larson/id1452403187 SPONSORS: DraftKings -Download the DraftKings Sportsbook app now using code SICKLER and compete for huge cash prizes!
Send me a text!In this episode of the Simple and Smart SEO Show, I spoke with Jonas Sickler, a digital marketing analyst from Terakeet. We explored the importance of SEO evolving with AI advancements, emphasizing Owned Asset Optimization (OAO) as a strategy. 1. Businesses should control their narrative across all digital platforms to improve the accuracy of AI tools.2. Meet the MACH-6 model: An upgrade to a traditional marketing model.Contrasts with the PESO model, emphasizing the importance of building equity in owned assets.Integrate SEO with other channels like social media and email for a cohesive strategy.3. AI and SEO are evolving. How your business can keep up:Businesses must tell accurate and updated stories across all digital platforms for more accurate AI-generated content. Optimize for both search engines and user experience. 00:00 Introduction and Guest Welcome01:09 Building a Positive Work Culture02:57 The Importance of Passion in Work02:57 Coaching and Leadership Insights06:17 SEO and Business Integration07:41 The Value of Owned Assets10:03 Leveraging Multiple Channels12:26 The Mach-6 Framework14:24 Collaboration Across Departments19:05 Optimizing Your Digital Assets19:37 The Importance of Social Profiles19:45 Revisiting Neglected Accounts20:07 Controlling Your Search Results20:24 Understanding the PESO Model21:48 Owned Asset Optimization Explained23:46 Real-Life Examples of Brand Stories27:32 Leveraging Technology for Customer Optimization28:59 SEO vs. Owned Asset Optimization31:55 Connecting with Your AudienceConnect With Jonas SicklerLinkedinTwitterExplore Terakeet ResourcesMACH-6 MatrixSchool of Podcasting -Launch, Grow, Monetize Your PodcastYou're don't know where to learn to podcast. Now You do. Click the link.Listen on: Apple Podcasts SpotifySupport the Show.Search the Simple and Smart SEO Show podcast for something you heard! It's free!Apply to be my podcast guest!
Achieving Success with Olivia Atkin Episode 85 "Achieving Cutting-Edge Leadership Through Innovation For Sustainable Growth Tactics with Rod Sickler"Olivia talks personal and professional achievements with Rod Sickler. Rod boasts an impressive 44-year tenure as a hairstylist. He serves as the Owner and President of IdHair North America, as well as the Owner and primary educator of the Rod Sickler Salon & Spa, Clutch Cuts, and Images by Rod & Co. His passion for mentoring led him to establish The Royal School by IdHair, a college specializing in cosmetology, barbering, and nail artistry. Additionally, he is the Founder, Producer, and Director of the acclaimed 'Rod Sickler Red Hot Winter shows'.Join Olivia every Tuesday as she brings on top notch guests to talk about how they are Achieving Success! Career Development Book and More at Achieving-success.comStay Connected With Us:Linkedin: https://www.linkedin.com/company/achieving-success-llcInstagram: @_achievingsuccessTwitter: @_achievesuccessFacebook: @Achieving Success
Jonas Sickler joins Jack Chambers-Ward to discuss a new digital marketing strategy - owned asset optimisation. Listen to this podcast if you want to know: What is owned asset optimisation? What are owned assets? Are there different types of owned assets? How do you optimise them? What is reception marketing? How do these strategies differ from “SEO” and “traditional digital marketing”? What's the difference between the PESO vs MACH-6 models? Sponsors: This week's podcast is sponsored by Wix Studio - the web platform built for agencies and enterprises. This week's episode is also sponsored by AlsoAsked - the best way to access People Also Ask data at scale. Follow Jonas: LinkedIn: https://www.linkedin.com/in/jonas-sickler/ X/Twitter: https://twitter.com/JonasSickler Website: https://terakeet.com/ Learn about owned asset optimisation: https://terakeet.com/blog/owned-asset-optimization/
This week, Gareth Reynolds joins me for a seat in The Wayback! We dive into Gareth's love of performing, starring in elementary class plays like Goldilocks and the Three Bears, Charlotte's Web, and Little Red Riding Hood. Sparking his own memories, Ryan shares a first-grade performance where he played Santa. Gareth tells us what it was like growing up in an anti-sugar, anti-TV household and the loopholes he and his siblings found to work around it (cardboard bricks for the win!). We swap stories about the anxieties of sleepovers, both hosting and attending. We discuss some of our favorite food modifications from back in the day and even get a fun fact from Gareth about the long-forgotten Domino's Pizza character, the Noid! SUBSCRIBE to my YouTube & turn notifications ON! https://youtube.com/@rsickler SUBSCRIBE to The HoneyDew & turn notifications ON! https://youtube.com/@rsickler SUBSCRIBE TO MY PATREON, The HoneyDew with Y'all, where I Highlight the Lowlights with Y'all PLUS get audio and video of The HoneyDew a day early, ad-free at no additional cost! It's only $5/month! https://www.patreon.com/TheHoneyDew If you or someone you know has a story that has to be heard, please submit it to honeydewpodcast@gmail.com COME SEE ME ON TOUR https://www.ryansickler.com/tour GET YOUR MERCH! https://shop.ryansickler.com/ http://ryansickler.com/ https://thehoneydewpodcast.com/ SUBSCRIBE TO THE CRABFEAST PODCAST https://podcasts.apple.com/us/podcast/the-crabfeast-with-ryan-sickler-and-jay-larson/id1452403187 SPONSORS: The Farmer's Dog -Get 50% off your first box plus free shipping when you go to https://www.TheFarmersDog.com/WAYBACK DraftKings -Download the new DraftKings Pick Six app now using code SICKLER and take on the competition with your best NBA player picks!
This week Andrew Santino takes a seat in The Wayback! (Whiskey Ginger, Bad Friends Podcast) We get nostalgic about carpools with strangers, leaving the car running, bmx bikes, high school talent shows, and growing up a Chicago Bulls fan. We also have our first phone call on The Wayback, when Andrew and his mom tell the story of how back in the 80s, someone stole the family car, and whether it was all Andrew's fault! SUBSCRIBE to my YouTube & turn notifications ON! https://youtube.com/@rsickler SUBSCRIBE to The HoneyDew & turn notifications ON! https://youtube.com/@rsickler SUBSCRIBE TO MY PATREON, The HoneyDew with Y'all, where I Highlight the Lowlights with Y'all PLUS get audio and video of The HoneyDew a day early, ad-free at no additional cost! It's only $5/month! https://www.patreon.com/TheHoneyDew If you or someone you know has a story that has to be heard, please submit it to honeydewpodcast@gmail.com COME SEE ME ON TOUR https://www.ryansickler.com/tour Los Angeles, CA | May 12th GET YOUR MERCH! https://shop.ryansickler.com/ http://ryansickler.com/ https://thehoneydewpodcast.com/ SUBSCRIBE TO THE CRABFEAST PODCAST https://podcasts.apple.com/us/podcast/the-crabfeast-with-ryan-sickler-and-jay-larson/id1452403187 SPONSORS: Liquid I.V. -Get 20% off your first order when you shop better hydration using promo code WAYBACK at https://www.LiquidIV.com DraftKings -Download the new DraftKings Pick Six app now using code SICKLER and take on the competition with your best NBA player picks!
Sam Tallent joins me on a new episode of The Wayback! We get nostalgic about being a youth football prodigy, old school coaches, childhood obesity and childhood fears. SUBSCRIBE to my YouTube & turn notifications ON! https://youtube.com/@rsickler SUBSCRIBE to The HoneyDew & turn notifications ON! https://youtube.com/@rsickler SUBSCRIBE TO MY PATREON, The HoneyDew with Y'all, where I Highlight the Lowlights with Y'all PLUS get audio and video of The HoneyDew a day early, ad-free at no additional cost! It's only $5/month! https://www.patreon.com/TheHoneyDew If you or someone you know has a story that has to be heard, please submit it to honeydewpodcast@gmail.com COME SEE ME ON TOUR https://www.ryansickler.com/tour Toledo, OH | April 26th & 27th Los Angeles, CA | May 12th Miami, FL | June 7th & 8th GET YOUR MERCH! https://shop.ryansickler.com/ http://ryansickler.com/ https://thehoneydewpodcast.com/ SUBSCRIBE TO THE CRABFEAST PODCAST https://podcasts.apple.com/us/podcast/the-crabfeast-with-ryan-sickler-and-jay-larson/id1452403187 SPONSORS: Shopify -Sign up for a one-dollar-per-month trial period at https://www.Shopify.com/wayback DraftKings -Download the new DraftKings Pick Six app now using code SICKLER and take on the competition with your best NBA player picks!
Get to know the athletes who will toe the line in Orlando for the Olympic Marathon Trials on Saturday in this special series called Trials Talk: Chasing the Dream. In this episode, Tyler Sickler talks his buildup for the 2024 Trials, being a high school biology teacher and what he hopes to convey to his students, Marvel movies, his order at Applebees, his mentality headed into the Olympic Trials, Disney and more! For more information on the 2024 U.S. Olympic Marathon Trials including news, feature stories, athlete profiles and more visit https://www.orlando2024trials.com/ Click here for Lactic Acid's social media pages and more: https://linktr.ee/lacticacidpodcast Lactic Acid is partnered with TrackBarn! Be sure to visit the website at https://trackbarn.com and use the code LACTICACID10 at the checkout for 10% off of your order. •Be sure to follow Lactic Acid on the following platforms: •YouTube: Lactic Acid Podcast with Dominique Smith •Twitter: Lacticacid_pod •Instagram: Lacticacidpodcast •TikTok: Lacticacid_podcast •Subscribe to one of the best newsletters in the track and field world, Fast Women: https://fast-women.org/subscribe/
Voices of Search // A Search Engine Optimization (SEO) & Content Marketing Podcast
Jonas Sickler, Digital Marketing Analyst at Terakeet, delves into leveraging search and SEO for stronger customer relationships. Search data reveals many insights into consumer behavior and brand perception. However, it's often overlooked by brands when they're evaluating the impact of their online and offline initiatives on consumer behavior. Today, Jonas discusses building stronger customer relationships through SEO.Show NotesConnect With: Jonas Sickler: Website // LinkedInThe Voices of Search Podcast: Email // LinkedIn // TwitterBenjamin Shapiro: Website // LinkedIn // TwitterSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Do you spend your days chasing what you love? Join in on Nick Clark's conversation with Tyler Sickler, a local biology teacher with a master's in biological sciences and marathon runner who just qualified for the Olympic Trials. Tyler reveals how finding and following your inspiration can lead to happiness and fulfillment in life. He also talks about the importance of intentional rest! Connect with Tyler on Instagram at @sickler_running --- Send in a voice message: https://podcasters.spotify.com/pod/show/playhardlovebig/message
Voices of Search // A Search Engine Optimization (SEO) & Content Marketing Podcast
Jonas Sickler, Digital Marketing Analyst at Terakeet, delves into leveraging search and SEO for stronger customer relationships. Search queries act as real-time indicators of consumer intent, providing valuable information about how to reach consumers when they're most receptive. Yet, SEOs consistently prioritize traffic and conversions, ignoring the brand reputation side of SEO. Today, Jonas discusses using search as an always-on focus group. Show NotesConnect With: Jonas Sickler: Website // LinkedInThe Voices of Search Podcast: Email // LinkedIn // TwitterBenjamin Shapiro: Website // LinkedIn // TwitterSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
SPONSORS: Don't miss out on all the action this week at DraftKings! Download the DraftKings app today! Sign-up using https://myaccount.draftkings.com/signup?intendedSiteExp=US-SB or through my promo code BEARS Go to https://Babbel.com/BEARS to get 55% off your Babbel subscription. Go to https://LIQUID-IV.com and use code: CAVE to get 20% off your first order. This week on 2 Bears 1 Cave, Tom Segura is joined by guest bear Ryan Sickler! They discuss Ryan's recent health scare, Tom's old basketball injury, living forever, and The Way Back, Sickler's brand-new nostalgia podcast. Tom also tells Ryan some F1 stories, Ryan shares a story about an alleged bomber who climbed up a ferris wheel on a pier, plus the bears talk famous villains from history like Whitey Bulger, new sleeping tips, and the dangers of the gold mining industry in Latin America. Try it out! https://tomsegura.com/tour https://www.bertbertbert.com/tour https://store.ymhstudios.com/ 2 Bears, 1 Cave Ep. 219 GAMBLING PROBLEM? CALL 1-800-GAMBLER (1-800-426-2537) (AZ/CO/IA/IL/IN/KS/KY/LA/MD/ME/MI/NJ/OH/OR/PA/TN/VA/WV/WY), (800) 327-5050 or visit http://gamblinghelplinema.org (MA). Call 877-8-HOPENY/text HOPENY (467369) (NY). Please Gamble Responsibly. Call 1-800-522-4700 (NH), 888-789-7777/visit http://ccpg.org (CT), or visit http://www.1800gambler.net (WV). 21+ (18+ KY/NH/WY). Physically present in AZ/CO/CT/IL/IN/IA/KS/KY/LA(select parishes)/MA/MD/ME/MI/NJ/NY/OH/PA/TN/VA/WV/WY only. Void in ONT/OR/NH. Eligibility restrictions apply. On behalf of Boot Hill Casino & Resort (KS). Bet $5 Get $200: Valid 1 per new customer. Min. $5 deposit. Min. $5 bet. $200 issued in bonus bets. Void in NH/OR. No Sweat: Opt in req. 1 No Sweat token issued per day. SGP/SGPx bets only. 3+ legs req. Max. wagering limits apply. Must use funds from cash balance. Must select token BEFORE placing bet. Bet must lose after applying Token. Paid as one Bonus Bet based on amount of losing bet. Tokens expire at start of the last game each day when offered. No Sweat cannot be used to redeem Bet $5 Get $200 offer. Rewarded bonus bets expire 7 days (168 hours) after being awarded. Bonus bets must be wagered 1x and stake is not included in winnings. Ends 01/28/24 at 11:59 PM ET. Sponsored by DK. See terms at http://dkng.co/ftball . Learn more about your ad choices. Visit megaphone.fm/adchoices
Michele Sickler was born and relinquished on Staten Island, NY in 1962. She was placed with her adoptive family at 3 weeks of age after being in foster care. She grew up in Queens, NY. Michele found her natural family almost 13 years ago, when she was 48. At that time, she found out her mother was African American, which wasn't disclosed in her adoption papers. She describes her reunion as difficult, as many adoptees do. Her natural mother died in 2015. She has been married for almost 40 years and has 4 adult children and 1 granddaughter. Thank you, Michelle, for joining us on Mind Your Own Karma! Eventbrite SMGI Zoom Retreat Info: https://www.eventbrite.com/e/reclaiming-wholeness-a-guided-meditation-group-for-adoptees-only-tickets-745793627817?aff=oddtdtcreator If you or someone you know would like to tell their adoption story on the podcast (anyone in the adoptee constellation), please send an email to mindyourownkarma@gmail.com, and your story will be considered for the podcast. _________ Due to the LONG-LASTING EMOTIONAL FALLOUT that can be part of adoption, I highly support the GENTLE HEALING SUPPORT of SMGI: Somatic Mindful Guided Imagery. For more information on this groundbreaking and highly successful method, go to https://www.somatichealingjourneys.com Please seek professional help if you find yourself struggling with some of the realizations that you may experience during this episode. This podcast's mission is on adoption education. If you have an expertise that you think would be beneficial to anyone touched by adoption and would like to be on the podcast, get in touch with me. I love to help fellow adoptees by helping to promote your latest project or expertise. It's time WE educate the world!! Check out the MYOK website for resources, ALL episodes of the podcast, and more about me! https://www.mindyourownkarma.com Follow me on Socials! MYOK on Instagram: https://www.instagram.com/mind_your_own_karma MYOK on Facebook: https://www.facebook.com/mindyourownkarma MYOK on YouTube: https://www.youtube.com/@MindYourOwnKarma Support Melissa with the financial costs of creating this podcast for as little as 99 cents per month! Each episode not only costs her in hours beyond a regular workday, but she also pays an editor to put it all together every week. Your support does make a difference. Thank you! https://podcasters.spotify.com/pod/show/melissa-ann-brunetti/support --- Support this podcast: https://podcasters.spotify.com/pod/show/melissa-ann-brunetti/support
Season Four Episode 1This episode is a sequel! It's a follow up to last year's "Contagious Laugh-ers" compilation. It'll probably turn into a regular series for our podcast as we continue to transition from a podcast to a lifestyle brand. I've got some new laugh-ers going into my Hall of Fame! Including: Ryan Sickler, Your Mom's House studios, Nadiv (former YMH producer, in memorium), Tom Segura, Joey Diaz, the NBA-On-TNT crew and UK Comedian Jamie Hutchinson (Havin' a quick wank). Sickler and company join Artie Lange, Dom DeLuise, Burt Reynolds and Ricky Gervais in the Contagious Laughter Hall of Fame. Thank you to the Have a Word podcast for the clips and to YouTube user @LOLNation!The podcast exists to examine and document pop culture comedy and at times begrudgingly uses unauthorized material to supplement our ongoing study of modern comedy. All rights reserved to the respective copyright owners. #Conaldpeterson #indiepodcasts #podcast #ConwayTwitty #Comedy #CountryMusic#Comedypodcast #ACDC #meditation #TrueCrime #UFO #UFOdebunking #UFOhunting #sasquatchhunting #sasquatch #podcasting #newpodcast #googlepodcasts #newpodcast #podcastmovement #podcastseries#newepisode #blackpodcasts #podcastepisode #newpodcastalert#applepodcasts #spotifypodcast #podcastshow#podcasthost #googlepodcasts #applepodcasts
Our first guest is a very familiar voice to our dedicated FF&C's fans, as our own Gene Blum updated us on all the goings-on at Tranquility Brewing Company. You may not know this, but Tranquility Brewing is located inside the former training facility for astronauts, so if you're looking to dress up for their upcoming Halloween celebration--you may bring home the top prize if you attend as one. And if you're looking to have some fun while giving back to a great cause, check out Tranquility Brewing's website as they host numerous events--some of which include FUNdraising celebrations. Speaking of which, they're amping up for their barrel-aged, whisky-infused Cider and Oktoberfest Beer which coincides with Tranquility's Oktoberfest Party! Don't worry, you needn't miss the festivities, as they're happening this Sunday (October 15th) at the Brewery!We know from old commercials that, "Beef. It's what's for dinner," and our next guest is doing just that. Rachel Sickler and her husband had the farming bug, and began to farm as a young couple. Both Rachel and her husband have ties to the farming industry, albeit one more loosely related than the other--but farming was a passion for the duo. So when an opportunity arose for David and his brother to purchase a farm, they did. A few years later, Rachel and David took over as sole owners of the farm, and renamed it as Sickler's Circle View Farm. Then in June of 2019. Rachel and David saw an immediate need for proteins, so the pair began offering livestock farming so meat could be much more accessible to the community and its surrounding neighborhoods.Take in the breath-taking views as we explore just why "Virginia is for lovers." Our last guest, Dorothy McIntyre, began Forest Farmers Market after she and her husband found themselves in a fresh-food desert. Having moved from New York to Virginia was a challenge, however, waking up and not having an opportunity for fresh produce can be extremely frustrating--this is why McIntyre grew weary of the 2+ hour drive to shop at the "local" farmer's market. So armed with a desire for quality ingredients, and with a goading husband's comment, McIntyre contacted her local government and advocated to establish a Farmer's Market. Eleven vendors later, the market was a huge hit, and grew to host over 40 vendors today--including three or four original vendors. Now, Dorothy's Forest Farmer's Market inspired her to establish another new one, named Moneta Farmer's Market in Smith Mountain Lake, VA. Want to know more? Then stay tuned thru the whole show to find out what to look forward to when you visit!
Eccentric rich man Pickles Johannesberg is up to so many nefarious undertakings it's truly tricky to keep track of all the mischief afoot. And Ian Herrin is such a terrible Sigmund Fraud of a therapist he seems to act more as Pickles' accomplice than a guardian of mental health should. Children deserve to know who their father is and some Jimmy's deserve hats. And even if Pickles is a little Wario like, he probably doesn't want to hear it from someone he's trusting in a therapy setting. If you or a loved one encounter Pickles in the wild, run away before he dandelions!! Let's A-Go, you've found the best part of the episode description! The part where I get to tell you all about the wonderful improviser, standup, and character performer April Sickler! Be sure you follow April on Instagram @asickler, check out April's team @improvised_dnd, and also her tremendously funny TikTok @aprilsick97 --- Support this podcast: https://podcasters.spotify.com/pod/show/sigmund-fraud/support
In this episode of On Deck, 17-year-old cellist Andrew Sickler speaks with Raúl Gómez-Rojas about finding the cello at a young age, and how a recent switch in his approach to practicing allowed him to discover a future in music. Andrew is on his way to the University of Oregon for a major concentration in music performance under the tutelage of Steven Pologe. In Portland, Andrew played with the Portland Youth Philharmonic and with his school orchestra at Tualatin High School.
Go see Ryan Sickler's new standup comedy special "Lefty's Son" Available on YouTube now: https://youtu.be/AXGHgyr2MNAGet the Eazy E Sleep Mask here: https://store.ymhstudios.com/collections/newest-products/products/eazy-e-had-aids-sleepmaskIt's another episode of 2 Bears 1 Cave with Tom Segura and guest bear, comedian and podcaster, Ryan Sickler! They talk about how wild the stories on Sickler's patreon is, discuss sex parties and share their most embarrassing sports moments. They share wild stories of Larry Bird talking trash, the Dream Team, and OJ Simpson. They talk about famous athletes with AIDs, freak athletes, trade coach stories and discuss athletes who smoke and party.https://tomsegura.com/tourhttps://www.bertbertbert.com/tourhttps://store.ymhstudios.com/
What I kooky time we had this past Thursday night (11pm ET, every week, broadcasting live) at Radio Free Brooklyn Studios with actor and improv comedian April Sickler (@asickler)! Guest co-host Shawn Wickens (@shwickens) and I embarked down a winding whimsical convo with April that touches on Black Mirror vs Twilight Zone, the movie AIR, how a podcast is supposed to run, possible lines of dialogue that might've been in Ant Man 3, the legacy of South Park, how to make more audience participation in improv, and we try to come up with spoof of Avatar. And for sure we got some wild, loopy improv scenes in, including one in a dysfunctional, resentment filled doctor's office. This is a weird, spacey, kooky hang. Come party with us! And please rate and subscribe if you like this!
In today's episode, we have another angel that begins to cry out that Babylon is fallen. Then a 3rd angel said that those who had taken the Mark of the Beast would drink of the wine of the fury of God's wrath. This includes torment in fire and brimstone, which doesn't sound good at all! We then see one sitting on a white cloud like the Son of Man, and He is about to thrust in His sickle and harvest the earth. We end this study with blood running as deep as the bridle of a horse, and a few more astonishing things that happen.In our famous Q&A segment, we received this question: What do you mean when you talk about Baal worship? Are you really meaning there are people who actually worship a cow, or a statue of a cow? We believe this will be an episode you won't forget!
Thursday, November 24, 2022 Our host this Thanksgiving is Kerby Anderson. Kerby welcomes Dr. Bradley Sickler from the University of Northwestern. He brings his book, God on the Brain. Then, Kerby speaks with long-time friend, Robert J. Morgan, Teaching Pastor of The Donelson Fellowship in Nashville, Tennessee. Robert shares his book, “100 Bible Verses That Made America.” […]
Jonas Sickler talks with Jason Barnard about where do branded searches on Google come from? Jonas Sickler is a published author and SEO manager at Terakeet. He leads the inbound organic search marketing strategy for the brand and writes about how to gain positive consumer attention through SEO and content strategy. His advice has appeared in Forbes, CMI and Search Engine Watch. Large and small companies have different perceptions of their brand's online presence, although both are focused on attracting more customers. The way they treat their online presence still matters a lot. Large companies tend to approach online branding this way: they are well-known in the offline world and have a huge customer base, so why should they worry about managing their online presence when they are already well established? Smaller companies often fail to see the return on investment of digital branding. Online branding is vital to every business, big or small. Who is googling your brand name? It's not only customers, but also prospects, investors, partners, future employees and so many more people who are super-important to your business. You'd be a fool to miss all those opportunities ;) Controlling what Google displays in your Brand SERP is definitely crucial. A groovy and insightful episode with Jason Barnard and this week's guest, Jonas Sickler, who shares incredible insights into how important it is for companies to invest in their brand's digital presence, why people search for someone or a company on Google and even how a company can handle a bad-news crisis. Incredibly fascinating! As always, the show ends with passing the baton… Jonas Sickler awesomely turned over the virtual baton to next week's pretty incredible guest, Daniel Alfon. What you'll learn from Jonas Sickler 00:00 Jonas Sickler and Jason Barnard01:16 Jonas Sickler's Brand SERP02:56 Terakeet's Brand SERP04:43 Kalicube Pros Saas for Agencies05:38 How Did Jason Barnard Get Started with Brand SERP?06:49 The Importance of Knowledge Panel Management07:26 Jason Hennessy's Knowledge Panel Success Within Two Months08:05 Why Do People Search Someone's Name on Google?09:27 Why Do People Search for a Company's Name on Google?10:32 What Drives Branded Search on Google?11:51 The Value of the Information Google Displays in a Brand SERP13:54 Do Reviews Still Matter?17:55 The Need for Businesses to Invest in Their Brand's Digital Presence20:06 Kalicube Case Study: Backpacker Job Board22:16 Controlling Companies' Digital Presence25:24 Do Job Seekers Google the Company They Want to Work for?27:30 How to Handle a Brand's Crisis?30:19 Passing the Baton: Jonas Sickler to Daniel Alfon This episode was recorded live on video October 18th 2022 Recorded live at Kalicube Tuesdays (Digital Marketing Livestream Event Series). Watch the video now >>
Jonas Sickler talks with Jason Barnard about where do branded searches on Google come from? Jonas Sickler is a published author and SEO manager at Terakeet. He leads the inbound organic search marketing strategy for the brand and writes about how to gain positive consumer attention through SEO and content strategy. His advice has appeared in Forbes, CMI and Search Engine Watch. Large and small companies have different perceptions of their brand's online presence, although both are focused on attracting more customers. The way they treat their online presence still matters a lot. Large companies tend to approach online branding this way: they are well-known in the offline world and have a huge customer base, so why should they worry about managing their online presence when they are already well established? Smaller companies often fail to see the return on investment of digital branding. Online branding is vital to every business, big or small. Who is googling your brand name? It's not only customers, but also prospects, investors, partners, future employees and so many more people who are super-important to your business. You'd be a fool to miss all those opportunities ;) Controlling what Google displays in your Brand SERP is definitely crucial. A groovy and insightful episode with Jason Barnard and this week's guest, Jonas Sickler, who shares incredible insights into how important it is for companies to invest in their brand's digital presence, why people search for someone or a company on Google and even how a company can handle a bad-news crisis. Incredibly fascinating! As always, the show ends with passing the baton… Jonas Sickler awesomely turned over the virtual baton to next week's pretty incredible guest, Daniel Alfon. What you'll learn from Jonas Sickler 00:00 Jonas Sickler and Jason Barnard01:16 Jonas Sickler's Brand SERP02:56 Terakeet's Brand SERP04:43 Kalicube Pros Saas for Agencies05:38 How Did Jason Barnard Get Started with Brand SERP?06:49 The Importance of Knowledge Panel Management07:26 Jason Hennessy's Knowledge Panel Success Within Two Months08:05 Why Do People Search Someone's Name on Google?09:27 Why Do People Search for a Company's Name on Google?10:32 What Drives Branded Search on Google?11:51 The Value of the Information Google Displays in a Brand SERP13:54 Do Reviews Still Matter?17:55 The Need for Businesses to Invest in Their Brand's Digital Presence20:06 Kalicube Case Study: Backpacker Job Board22:16 Controlling Companies' Digital Presence25:24 Do Job Seekers Google the Company They Want to Work for?27:30 How to Handle a Brand's Crisis?30:19 Passing the Baton: Jonas Sickler to Daniel Alfon This episode was recorded live on video October 18th 2022 Recorded live at Kalicube Tuesdays (Digital Marketing Livestream Event Series). Watch the video now >>
This week on When Wife Gives You Lemons Podcast we talk about going yto the comedy store, Santa Clarita History, horse puppy and more #santaclarita #thecomedystore #relationships
Tickets at www.mdplayhouse.com
In this episode we talk to our special guest… Teacher and Co-Founder of Mountain Harvest Media Angie Sickler about her recent journey in the scriptures and what she's discovered that has caused her to fall in love with the word of God all over again.
Comedian Sara Weinshenk sits down w/ Comedian Ryan Sickler they discuss everything from their experiencing seeing Prof live to their bizarre experience at the rainbow room where Sickler was "feathered by a they".Follow Ryan Sickler on Instagram and on TwitterCheck Out Ryan's podcast The Honey Dewhttps://www.ryansickler.comFollow Sara Weinshenk @princessshenkFollow Kim Congdon and Weinshenk's new podcast This Bitch subscribe on youtube Brought to you by:https://ooohyeah.com @ooohyeahsocks - Discount Code: SARA10
Matt Sickler, Head of Demand Generation & North America Marketing at Linnworks, talks with Jeremy about building a modern marketing function.Highlights:Matt's bottom up and top down modern marketing function Skills to look for in a modern marketing teamMatt's approach to build a martech stack Learn more about LinnworksConnect with Matt on LinkedIn
The term “payvider” is being used with increasing frequency. A “payvider” is a provider that also serves as the health plan, taking on risk directly from employers, Medicare, or state Medicaid agencies. Banner Health is one such payvider. Founded in 1999 as the result of a merger, Banner Health is headquartered in Phoenix, AZ and owns and operates thirty hospitals including three academic medical centers across six states. Over the years, Banner Health has morphed into a fully integrated delivery system with its own network and medical groups. Banner Health offers its own Medicare Advantage, commercial and Medicaid Plans, but also has a joint venture with Aetna and through that JV, has competing plans. With us today is Donna Sickler the Division CFO for Insurance Operations at Banner Health. Donna will help us understand the advantages and challenges of being an Integrated Delivery System and an insurer, and she'll walk us through how the organization manages the relationship with a JV partner which is also a competitor. Show notes: Book: The Code Breaker: Jennifer Doudna, Gene Editing, and the Future of the Human Race by Walter Isaacson, Kathy Mazur, et al.
On this week's episode of This Bitch, Kim and Sara sit down with Ryan Sickler to talk sandwiches, big wheels and roachesFollow Ryan Sickler on Instagram and on TwitterCheck Out Ryan's podcast The Honey Dewhttps://www.ryansickler.comFollow Kimberly Congdon on Instagram for show dates.Check out her podcast Broad TopixFollow Sara Weinshenk on Instagram for show datesCheck out Sara's podcast SHENKNew Episodes Monday!Presented by Liquid Death (Water)Free Shipping on water + merch:Liquiddeath.com/TKS.Album art and intro music by Young and SickEditing by Xavier Campos
Recorded Live at The Tiny Cupboard in Bushwick, Brooklyn NYC Monday, Feb 14, 2022 - 8:30pm Remind us what we covered in this episode so we can update this description. "Love" or "Romance" is probably in there at some point. Guests: Xavier Pearson and April Sickler Hosted by Shawn Wickens and Ralf Jean-Pierre House Manager / Fact-checker: Anya Jones Photo by Eli S. --- Send in a voice message: https://podcasters.spotify.com/pod/show/timetravelingstoned/message Support this podcast: https://podcasters.spotify.com/pod/show/timetravelingstoned/support
Recorded Live at The Tiny Cupboard in Bushwick, Brooklyn NYC Monday, Feb 14, 2022 - 8:30pm Remind us what we covered in this episode so we can update this description. "Love" or "Romance" is probably in there at some point. Guests: Xavier Pearson and April Sicklyer Hosted by Shawn Wickens and Ralf Jean-Pierre House Manager / Fact-checker: Anya Jones Photo by Eli S.
Rod Sickler is the Owner/Operator of Rod Sickler Salon and Spa Champaign, IL Has a long history of business in the Champaign, Il area Compelling life story Founder of Red Hot Winter which is celebrating 20 years this year. Red Hot Winter will be Feb 25th & 26th at The City Center in Champaign, IL. see the web site for details Red Hot Winter 2022Tickets: www.redhotwinter.comRod Sickler Salon and Spa 217-403-1790 https://www.facebook.com/RedHotWinter
Maj. Dan. Sickles had somewhat less that a sparkling military career. He almost single-handedly lost the battle of Gettysburg, was the "principle fixer" of the 1878 presidential election and practcally singly-handed started a war with Spain.And that's only the beginning. Author/Historian Jim Devine has done a deep-dive into Maj. Sickler's ignominious career and is here tonight to tell us about this interesting character and period in history.
In this episode, Matt Sickler discusses the authenticity of the content. He talks about the importance of creating authentic content. He further mentions what the role of the subject matter expert is in verifying the authenticity of the content published. Contact Matt Sickler| Follow us on LinkedIn.
SPONSORS: - Go to https://stamps.com, click on the microphone at the top of the homepage and type in MOM to get a a 4-week trial PLUS free postage and a digital scale. - Go to https://Grove.com/MOM and you will get to choose a FREE starter set with your first order. - Go to https://Squarespace.com/MOM for a free trial and when you're ready to launch, and use the offer code MOM to save 10% off your first purchase of a website or domain - Policygenius has saved customers an average of $1,250 per year on their home and auto insurance. Head to https://policygenius.com to get started right now. - Save up to 65% off your subscription when you go to https://BABBEL.com/MOM. - Check out https://Fiverr.com and use code MOM to get 10% off your first order! - Go to https://BlackRifleCoffee.com/MOM today to get the new Cold Brew Packs. - Go to https://ForHims.com/mom and get your first visit absolutely free! WHAT? This week on YMH, Tom Segura and Christina P are still keeping their jeans high and tight through the eye infections and smashed ankles! We get a lunch update from Tom and reveal Nadav's secrets to reaching his healthy/morbidly obese weight! Did you know you could buy cookie dough by the pint?! We watch a new Fedsmoker video where he terrorizes an innocent bystander, AND we discover a guy who surgically transitioned into becoming Korean! We watch an insane video that revolts Christina and gets Tom to put his head in a trash can. Then we get into some brown talk and see a guy really frustrated with how his body doesn't completely evacuate EVERYTHING it's got. Then, Ryan Sickler returns to Studio Jeans and joins Tom Segura! Ryan discusses an altercation with a construction worker he had, and Tom warns him to look out for wasps/waspes! They'll really get you! Ryan then talks about his brother's snake/animal phase as a kid. He was pulling all sorts of really intense pranks that absolutely no one would be down with. Sickler shares an intense story about "turfing" someone's yard as a kid and getting extremely lucky. They analyze a British cool guy being nuisance on a construction site, watch "Horrible or Hilarious" videos and clips of people flubbing Bert Kreischer's name.
Dedication service for Rafe and Tate Sickler
On this week's episode of The Rural Woman Podcast, Abigail Sickler. Abby, is a proud 5th generation farmer, growing both her family and their dreams on the same ground that her family before her did. As a lifelong Salem County resident, agriculture has always been a foundation in Abby's life. Even when life was pulling her in different directions, she knew it was a part of her that she could never truly give up. From the impulse decision to raise pasture raised poultry to taking the opportunity of a lifetime to reopen a landmark produce market, Abby is far from afraid of a challenge. For full show notes including links in today's show, head on over to WildRoseFarmer.comhttps://wildrosefarmer.com/108 Get Patron-Only Extended Content & Bonus Episodes | Listen Here Support my work on Patreon | Learn More Patreon Executive Producer | Sarah R. | Happiness by The Acre Editing | Max Hofer | https://www.facebook.com/mixbaerstudio/ (MixBär Studio) Shop our Show Sponsors | Here Before You Buy The Mic | Podcast Coaching | Learn More Positively Farming Media | a hub for creators in the food & agriculture space | Learn More
*This encore performance originally aired on 12-15-2020 Researchers are increasingly presenting the brain as comprising the totality of a person. But is this a fair assessment? Dr. Brad Sickler, in his book "God on the Brain: What Cognitive Science Does (and Does Not) Tell Us about Faith, Human Nature, and the Divine," offers a timely analysis to this question and argues that the brain is more complex than what can be explained by science alone.
Researchers are increasingly presenting the brain as comprising the totality of a person. Dr. Brad Sickler, in his book “God on the Brain: What Cognitive Science Does (and Does Not) Tell Us about Faith, Human Nature, and the Divine,” defends against the thought that the brain controls all of who we are. Brad argues that science shows that there is room for the miraculous relationship we have with God. Then Sarah Knox joins us to discuss her profession as an auctioneer and how God matched her talents with her calling and how prayer is vital for the success of her auctions.
*This interview first aired on December 15, 2020 Researchers are increasingly presenting the brain as comprising the totality of a person. But is this a fair assessment? Dr. Brad Sickler, in his book “God on the Brain: What Cognitive Science Does (and Does Not) Tell Us about Faith, Human Nature, and the Divine,” offers a timely analysis to this question and argues that the brain is more complex than what can be explained by science alone.
Researchers are increasingly presenting the brain as comprising the totality of a person. But is this a fair assessment? Dr. Brad Sickler, in his book "God on the Brain: What Cognitive Science Does (and Does Not) Tell Us about Faith, Human Nature, and the Divine," offers a timely analysis to this question and argues that the brain is more complex than what can be explained by science alone.
Bruce is a Reservations Representative in Dallas-Fort Worth as well as the Program Director & founder of 'It's Cool to Fly' at American Airlines. Since its launch in 2014, ICTFA has served more than 5,000 participants and 1,500 families! This program is essentially a mock travel experience, helping children and their families know what to expect from their air travel experience and bringing greater inclusion, awareness and understanding to those on the autism spectrum. Tune in to learn more about Bruce & ICTFA!
In this full extended version, John goes more in-depth about his sexual relationships, the importance of intimacy and trust, and how he ventured from being a Christian minister to an agnostic. Sadly, you won't be able to see Kumar blush.
Robert Sickler, the Voice of Whisky, organizes whisky events, mixology presentations and educational seminars in order to introduce people to all things whisky. Trained in all aspects of the category by experts at some of the world's most famous distilleries, Sickler enjoys “bringing whisky to the people” and converting enthusiasts “one dram at a time.” Before his career in whisky, Robert taught literature and composition. His passion for wine and spirits prompted him to change course. He became a passionate veteran of the wine and spirits industry, crafting cocktails, studying wine, hosting spirited dinners throughout the land before becoming a Master of Whisky for international drinks company Diageo. As Master of Whisky, Sickler studied in renowned distilleries He also visited dozens of additional distilleries to strengthen his understanding of the distillation process. His extensive knowledge of whisky enabled him to thrive as a leading brand ambassador and valued educational resource for distributors, consumers and trade in Ohio, West Virginia, Colorado, Missouri, Oklahoma, Arkansas, New Mexico and Kansas. In 2015 Robert formed the Voice of Whisky, a whisky event and consulting company. As Voice of Whisky he engages with bar owners and managers, food & beverage directors, chefs and restauranteurs on menu development, mixology, spirits education and event marketing. He also hosts exclusive events, offers advice on product development and evaluation, conducts product reviews and is available for media presentations and public appearances. Sickler also instructs The Whisky Ambassador Program, the UK's only accredited training course about whisky. It is a fun and interactive training program designed for professionals who work in the hospitality and spirits industry. The program gives staff and salespeople the knowledge, skills and confidence to talk to customers about Scotch whisky, leading to a better customer experience and increased sales. Upon completion of the written and practical exam participants receive a Whisky Ambassador certificate and badge to showcase their achievement. When he's not bringing whisky to the people Robert enjoys expanding his culinary prowess in the kitchen. He incorporates his knowledge of international cuisine and proclivity for unique flavor combinations to create food and drink pairings that “transform hearts, minds and palates” at public and private spirited dinners. His fondness for herbs, spices, and exotic botanicals is also translated into innovative cocktails at his events that participants describe as both “approachable” and “unforgettable”. Robert's fondness for worldly libations and global cuisine inspired him to join forces with partners Noah Price and Thomas Merrill to establish a whisky and rum cocktail bar and food truck pod, showcasing whisky and rum cocktails and gourmet goodies. The bar, Finn's Manor, opened in September and will feature a series of ongoing spirited events and classes for the public and trade. The cocktails will pay homage to Scotland, the Caribbean, southeast Asia and New Orleans, places which have inspired Robert throughout his food and drinks journey. Today he is also the host of the podcast „Raise your Glass“. Raise a Glass will explore the world of artisinal beverages, discussing their origins, applications and relevance with fellow professionals and enthusiasts.
Wuss goin on here? Public dicks. How many have you seen? We recap a lifetime of sightings and the way they have affected us. Not only has the OG Ryan Sickler graced us with his feast-like presence we also have Tinas cousin Juli in the Mommy Dome. We talk about drugs that hit ya in a way you didn't expect (NOT GOOD). We go over different types of Punk music (anarcho, crust, awful, etc.) and how much Christina still hates UB40 (the world's greatest band?). What do you know about Sister Nancy? Prison dudes love booty and more! Go ahead and bookmark this as one of your favorite episodes yet. Cut holes in your jeans.
F**K HALF the Crab Feast! The Mommy Dome happily welcomes fellow podcaster and comedian, well-dressed man, Jay Larson AKA Bunt Cake. Larson is a guy that makes you feel good cause he's a man of the people. We talk about Kai The Hitchhiker and the crazy audio he provided that is sweeping the web Smash, SmaSH, SMASH! Plus clubs that we love to work, nicknames for our beloved, how gross boogies are, and sports stories that Tina wants to kill us for (she just doesn't understand). It's a fun time with a great guy. Pick your jeans up off the ground!