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Dr. Greg Cooper and Dr. David G. Coughlin discuss the role of αSyn-SAAs in diagnosing DBL and their relationship with Alzheimer's disease biomarkers. Show citation: Coughlin DG, Jain L, Khrestian M, et al. CSF α-Synuclein Seed Amplification Assays and Alzheimer Disease Biomarkers in Dementia With Lewy Bodies: Presentation and Progression. Neurology. 2025;105(12):e214346. doi:10.1212/WNL.0000000000214346 Show transcript: Dr. Greg Cooper: Hi, this is Dr. Greg Cooper. I just finished interviewing Dr. David Coughlin for this week's Neurology Podcast. For today's Neurology Minute, I'm hoping you can tell us the main points of your paper. Dr. David Coughlin: The main points of this paper in my mind is that α-Synuclein seed amplification assays from cerebrospinal fluid samples is useful in confirming the presence of synuclein pathology in people with clinically suspected dementia with Lewy bodies. But also that, for people who have synuclein positivity, that the presence of Alzheimer's disease mixed pathology is associated with a worse cognitive progression over time. Dr. Greg Cooper: Thank you Dr. Coughlin, for that summary and for all of your work on this topic. Please check out this week's podcast to hear the full interview and read the full article published in Neurology, CSF α-Synuclein Seed Amplification Assays and Alzheimer's Disease Biomarkers in Dementia with Lewy Bodies. Thank you.
Many patients will affirm seeing clouds shaped like animals or other similar phenomena, which is why confirming pareidolia (seeing meaningful images in meaningless visual stimuli) is such a tricky symptom in dementia with Lewy bodies (DLB). While it may not be exclusive to DLB, placing such symptoms in the context of "the company it keeps" is a key method to narrowing down the diagnosis. The Editors' Choice paper for the February 2026 issue of Practical Neurology is a practical guide to the clinical diagnosis and management of DLB. Authors Dr. Sarah Fullam¹ ² and Dr. Seán O'Dowd¹ ³ join PN podcast editor Dr. Amy Ross Russell to discuss their work. They describe the importance of the initial examination, from the patient's gait to difficulties in word retrieval. They also touch on challenges in the use of biomarkers, which drugs may be helpful, and how to advise patients and their carers. Read the paper: Dementia with Lewy bodies: a practical guide to clinical diagnosis and management Special thanks to The Podcast Studios Dublin for their assistance with the recording of this episode. (1) Tallaght Institute of Memory and Cognition, Tallaght University Hospital, Dublin, Ireland (2) Trinity College Dublin School of Medicine, Dublin, Ireland (3) Trinity College Dublin Academic Unit of Neurology, Dublin, Ireland Please subscribe to the Practical Neurology podcast on your favourite platform to get the latest episodes. If you enjoy our podcast, you can leave us a review or a comment on Apple Podcasts (https://apple.co/3vVPClm) or Spotify (https://spoti.fi/4baxjsQ). We'd love to hear your feedback on social media - @PracticalNeurol. This episode was hosted by PN's podcast editor Dr. Amy Ross Russell. Production by Amy Ross Russell and Brian O'Toole. Editing by Brian O'Toole. Thank you for listening.
Dr Sam Moxon, narrates his blog written for Dementia Researcher. In this blog, Sam reflects on the reality of Lewy body dementia through both his research background and his experience caring for his grandfather. He explores why LBD is so difficult to diagnose, how symptoms fluctuate, and how families are often left without clarity or closure. The piece speaks to the emotional weight of uncertainty and the importance of continuing to talk about LBD, not to find neat answers, but to help future families feel less alone. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-never-truly-known-the-reality-of-lewy-body-dementia/ -- Dr Sam Moxon is a biomaterials Research Fellow at University of Birmingham. His expertise falls on the interface between biology and engineering. His PhD focussed on regenerative medicine and he now works on trying to develop 3D bioprinting techniques with human stem cells, so that we better understand and treat degenerative diseases. Outside of the lab he hikes through the Lake District and is an expert on all things Disney. -- Enjoy listening and reading our blogs? We're always on the look out for new contributors, drop us a line and share your own research and careers advice dementiaresearcher@ucl.ac.uk This podcast is brought to you in association with the NIHR, Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social Join our community: https://onelink.to/dementiaresearcher
Ajantha Abey narrates his blog written for Dementia Researcher. In this blog Ajantha reflects on why Lewy body disease deserves far greater attention within dementia research. Drawing on their journey from Alzheimer's focused tau research into synuclein pathology, the blog explores co occurring disease, diagnostic challenges, biomarker advances, and why understanding overlap across conditions is essential for better science and better care. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-alzheimers-to-lewy-body-disease-expanding-our-research-horizons/ -- Dr Ajantha Abey is a Postdoctoral Researcher in the Kavli Institute at University of Oxford. He is interested in the cellular mechanisms of Alzheimer's, Parkinson's, and other diseases of the ageing brain. Previously, having previoulsy explored neuropathology in dogs with dementia and potential stem cell replacement therapies. He now uses induced pluripotent stem cell derived neurons to try and model selective neuronal vulnerability: the phenomenon where some cells die but others remain resilient to neurodegenerative diseases. -- Enjoy listening and reading our blogs? We're always on the look out for new contributors, drop us a line and share your own research and careers advice dementiaresearcher@ucl.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social Join our community: https://onelink.to/dementiaresearcher
Dr Peter Connelly narrates his blog written for Dementia Researcher. In this blog Peter explores how dementia with Lewy bodies can present very differently from other dementias, particularly in its early stages. Drawing on clinical experience, he outlines key features including sleep disturbance, hallucinations, movement changes, and fluctuating attention, and explains how careful observation during assessment can support earlier recognition. The piece also reflects on current treatment limitations and highlights opportunities for environmental and non drug interventions to inform future research and care practice. Find the original text, and narration here on our website. https://www.dementiaresearcher.nihr.ac.uk/blog-recognising-dementia-with-lewy-bodies-in-clinical-practice/ -- Dr Peter Connelly is a retired Old Age Psychiatrist who spent much of his career in Tayside, helping to establish clinical trials for dementia and neuroprogressive disorders in Scotland. Now working with the Scottish Neuroprogressive and Dementia Network, he combines professional insight with personal experience as a former carer. In retirement, he enjoys music, golf, and time with his grandchildren. -- Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social Join our community: https://onelink.to/dementiaresearcher
In this episode of the Dementia Researcher Podcast, we focus on Lewy body dementia and why it remains one of the most misunderstood and frequently misdiagnosed forms of dementia. Released ahead of Lewy Body Dementia Day on 28 January, the conversation explores what Lewy body dementia is, how it sits between existing diagnostic categories, and why it often takes years for people to receive the right diagnosis. -- Host Dr Sam Moxon is joined by three researchers working on Lewy body dementia from very different angles:
In this episode, we review the high-yield topic of Dementia With Lewy Bodies from the Neurology section at Medbullets.comFollow Medbullets on social media:Facebook: www.facebook.com/medbulletsInstagram: www.instagram.com/medbulletsofficialTwitter: www.twitter.com/medbulletsLinkedin: https://www.linkedin.com/company/medbullets
Remembering Frankie: When Real Estate Meets Real Life At Boston Connect Real Estate, we talk about homes, transitions, and new chapters every single day. But occasionally, life reminds us that before we are Realtors, brokers, agents, or clients, we are people. And some moments deserve to be honored exactly as they unfold. This past episode of Talk Real Estate Roundtable was one of those moments. A Personal Story Shared On December 13th, Sharon McNamara, Broker/Owner of Boston Connect Real Estate, opened the show not with market statistics or contract contingencies but with her heart. Sharon shared the passing of her father, Francis “Frankie” Costa, after a long and challenging journey with Lewy Body dementia. Frankie lived a full life 88 years filled with family, humor, resilience, and love. Yet, as Sharon shared, the grief did not come from his age, but from the years-long process of slowly losing pieces of someone you love while they are still physically here. “When my dad took his last breath, I felt like I took my first in three years.” That moment captured what so many families experience when caring for aging parents relief mixed with sorrow, gratitude mixed with exhaustion, and love layered into every emotion. Dementia, Caregiving, and Compassion Sharon spoke candidly about the realities of caregiving: the guilt, frustration, exhaustion, and the emotional toll of making impossible decisions. She highlighted how dementia is not just hard on the individual it deeply affects the entire family. A heartfelt thank-you was extended to the Senior Behavioral Health Department at Beth Israel in Plymouth, whose staff cared not only for Frankie, but for Sharon as well. “They didn't just take care of my dad, they took care of me.” From simple gestures to profound compassion, the care team provided dignity, comfort, and humanity during the most vulnerable moments of Frankie's life. Love, Legacy, and Saying It Out Loud Throughout the episode, one theme echoed again and again: say ‘I love you.' Frankie's final words to Sharon were, “I love you too.” A moment of clarity, connection, and peace that will live on forever. The conversation expanded into how often we hesitate to express love to friends, colleagues, neighbors because it may feel awkward. Sharon challenged that hesitation. “I don't ever want the opportunity to go by where I don't say that I love you.” It was a reminder that love doesn't need perfect timing or perfect words it just needs to be said. Bringing It Back to Real Estate: Why Preparation Matters As difficult as it was, the conversation gently returned to real estate because life events and real estate are often deeply intertwined. Selling a home after the loss of a loved one can feel overwhelming, especially when emotions are raw and decisions feel impossible. This is why Sharon and the Boston Connect team emphasize preparation: Having wills and trusts in place Understanding long-term housing options Planning ahead for transitions Leaning on a trusted real estate team when the time comes “I can sell your home so you can do what you need to do to grieve, to heal, to breathe.” Real estate isn't just about transactions. It's about protecting families during some of life's hardest chapters. Honoring Frankie's Legacy In lieu of flowers, Sharon created a GoFundMe in Frankie's memory to support patient comfort at Beth Israel Senior Behavioral Health Center. The funds will be used to purchase recliner-style wheelchairs providing dignity and comfort to patients while easing the physical strain on caregivers. It's a tangible way to turn gratitude into lasting impact something Frankie would have deeply appreciated. A Final Thought This episode of Talk Real Estate Roundtable reminded us why connection matters. Why empathy matters. Why community matters. And above all, why love should never go unsaid. From all of us at Boston Connect Real Estate thank you for listening, for supporting, and for being part of our extended family. We love you.
For years, modern medicine has promised certainty—more data, sharper diagnostics, faster answers. Yet some spiritual moments defy logic and explanation. Instances where coma patients awaken after weeks of silence, or individuals once immobilized by Lewy Body disease rise and walk with strength. These are modern-day miracles, often grounded in faith and prayer, reminding us that healing can transcend science. On this episode of The Reboot Chronicles, Dr. Marc Siegel joins us to explore the profound intersection of medicine and miracles. A clinical professor at NYU, Fox News Senior medical analyst, and the medical director of SiriusXM's Doctor Radio' for nearly two decades, Dr Siegel has been a trusted guide through the most pressing public health challenges of our time. A best-selling author, with his sixth book out entitled, The Miracles Among Us: How God's Grace Plays a Role in Healing, Dr. Siegel takes us beyond the boundaries of medical protocol to explore how faith can heal in ways medicine cannot. Follow along as we reflect on Marc's remarkable career and personal reboots shaped by science, epidemics, faith, and miraculous recoveries.
PDFs Available here: https://rhesusmedicine.com/pages/neurologyConsider subscribing (if you found any of the info useful!): https://www.youtube.com/channel/UCRks8wB6vgz0E7buP0L_5RQ?sub_confirmation=1Timestamps:0:00 What is Dementia?0:47 Dementia Sign and Symptoms (Dementia Timeline) 1:12 Dementia Symptoms3:45 Alzheimer's Disease5:29 Vascular Dementia7:03 Dementia With Lewy Bodies (Lewy Body Dementia)8:09 Frontotemporal Dementia9:23 Dementia Risk Factors11:36 Dementia Diagnosis 12:58 Dementia TreatmentReferencesNational Center for Biotechnology Information (NCBI), 2019. Dementia. Available at: https://www.ncbi.nlm.nih.gov/books/NBK557444/Alzheimer's Association, 2025. What is dementia? Available at: https://www.alz.org/alzheimers-dementia/what-is-dementiaNational Center for Biotechnology Information (NCBI), 2019. Alzheimer Disease. Available at: https://www.ncbi.nlm.nih.gov/books/NBK499922/Dementia Care Central, 2025. Vascular Dementia.Available at: https://www.dementiacarecentral.com/aboutdementia/vascular/Alzheimer's Society, 2025. What can increase a person's risk of dementia? Available at: https://www.alzheimers.org.uk/about-dementia/risk-factors-and-prevention/what-can-increase-persons-risk-of-dementiaWikipedia, 2025. Dementia. Available at: https://en.wikipedia.org/wiki/DementiaAlzheimer's Society, 2025. The later stage of dementia. Available at: https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/how-dementia-progresses/later-stages-dementiaNational Center for Biotechnology Information (NCBI), 2019. Dementia: Clinical Overview. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6689673/National Center for Biotechnology Information (NCBI), 2016. Dementia Prevention, Intervention, and Care. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4827373/Lewy Body Dementia Association, 2025. Symptoms. Available at: https://www.lewybody.org/about-lbd/symptoms/Alzheimer's Association, 2025. Frontotemporal Dementia. Available at: https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/frontotemporal-dementiaNational Center for Biotechnology Information (NCBI), 2020. Dementia with Lewy Bodies. Available at: https://www.ncbi.nlm.nih.gov/books/NBK559286/Disclaimer: Please remember this podcast and all content from Rhesus Medicine is for educational and entertainment purposes only and is not a guide to diagnose or to treat any form of condition. The content is not to be used to guide clinical practice and is not medical advice. Please consult a healthcare professional for medical advice.
Dr. Jason Crowell and Dr. YuHong Fu discuss the importance of differentiating between dementia with Lewy bodies and Parkinson disease dementia. Show citatiion: Fu Y, Halliday GM. Dementia with Lewy bodies and Parkinson disease dementia - the same or different and is it important?. Nat Rev Neurol. 2025;21(7):394-403. doi:10.1038/s41582-025-01090-x
Dr. Jason Crowell talks with Dr. YuHong Fu about the importance of differentiating between dementia with Lewy bodies and Parkinson disease dementia. Read the related article in Nature. Disclosures can be found at Neurology.org.
Mary Lou Falcone, is a classical music publicist, and author of 'I Didn't See It Coming: Scenes of Love, Loss and Lewy Body Dementia', sharing the story of caring for her husband, Nikki Zahn. She joins Debbie Monterrey.
In this episode, host Antonia Eisenkoeck, speaks with Ian McKeith, Emeritus Professor of Old Age Psychiatry at Newcastle University, UK. They delve into the history of dementia with Lewy bodies research, highlighting key milestones and breakthroughs. Discover insights into the current state of the field and what the future holds for understanding and treating this condition.Click here to read the full articles of this series:https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(25)00363-1/fulltexthttps://www.thelancet.com/journals/laneur/article/PIIS1474-4422(25)00323-0/fulltexthttps://www.thelancet.com/journals/laneur/article/PIIS1474-4422(25)00314-X/fulltextContinue this conversation on social!Follow us today at...https://thelancet.bsky.social/https://instagram.com/thelancetgrouphttps://facebook.com/thelancetmedicaljournalhttps://linkedIn.com/company/the-lancethttps://youtube.com/thelancettv
On this episode Fred goes solo to discuss Parkinson's Disease, the Michael J Fox Foundation, his father's story of living with Lewy Body dementia. his participation in the MJFF ground breaking Parkinson's Progression Markers initiative, their discovery of a biomarker and how you can help. *On this episode Fred used the term Lewy Body Dementia, this term describes both Dementia with Lewy Bodies and Parkinson's Disease with Dementia. He used this term incorrectly in stating that in Lewy Body Dementia cognitive decline begins within one year of diagnosis. It is Dementia with Lewy Bodies in which the cognitive decline begins within one year of diagnosis and Parkinson's Disease Dementia in which the cognitive decline appears later. To stream our Station live 24/7 visit www.HealthcareNOWRadio.com or ask your Smart Device to “….Play Healthcare NOW Radio”. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen
Carolyn Larkin Taylor, M.D., is a seasoned neurologist who has dedicated over three decades to the practice of medicine. A graduate of the University of Notre Dame and Hahnemann Medical College, she completed a neurology residency at the University of Pennsylvania, where she was awarded the Humaneness in Medicine Award and recognized as one of Philadelphia's Top Docs for Women. Her manuscript Through a Mother's Eyes was awarded second place for best unpublished memoir by the Pacific Northwest Writers Association. Dr. Taylor also has authored Whispers of the Mind.
Certified Elder Law Attorney Barbara McGinnis chats with Dr. Monica Crane about one of the most challenging and misunderstood forms of dementia. Dr. Crane will discuss:
What does it feel like to get your dad back for a few beautiful moments of clarity, only to have dementia snatch him away again? This week, we're joined by our dear friend Haley for a powerful and vulnerable conversation about losing her father, the beloved musician Cyril McPhee, to Lewy Body Dementia. Haley opens up about the "trickster" nature of the disease, the profound experience of "pre-grieving" a parent who is still alive, and the beautiful legacy he left behind, known as "The Cyril Effect." This is a deeply moving look at grief, family, and the enduring power of love in the face of a devastating illness.Check out the episode on YouTube to see some of Haley's incredible photos of her father in his final days: You can watch this entire episode over on YouTube! Follow Sickboy on Instagram, TikTok and Discord!
What does it feel like to get your dad back for a few beautiful moments of clarity, only to have dementia snatch him away again? This week, we're joined by our dear friend Haley for a powerful and vulnerable conversation about losing her father, the beloved musician Cyril McPhee, to Lewy Body Dementia. Haley opens up about the "trickster" nature of the disease, the profound experience of "pre-grieving" a parent who is still alive, and the beautiful legacy he left behind, known as "The Cyril Effect." This is a deeply moving look at grief, family, and the enduring power of love in the face of a devastating illness.Check out the episode on YouTube to see some of Haley's incredible photos of her father in his final days: You can watch this entire episode over on YouTube! Follow Sickboy on Instagram, TikTok and Discord!
There is an important role for cost-effective clinical biomarkers in the diagnosis of Parkinson's disease. Dr. Eduardo de Pablo-Fernández and Dr. Cecilia Tremblay discuss how accurate hyposmia and REM sleep behavior disorder can predict Lewy pathology in a non-selected population using data from the Arizona clinicopathological study on Aging and Neurodegeneration. Read the article.
Lewy body dementia affects over a million people in the United States, but many people don't know much about it. It's difficult to diagnose and often misdiagnosed. A new documentary called “Facing the Wind” shines a light on Lewy body dementia, both living with it and caring for someone who has the disease. Racquel Williams talks with Philadelphia filmmaker Tony Heriza and Linda Szypula, who lives in Plymouth Meeting and whose journey caring for her husband is featured in the film. Scribe Video Center is hosting a screening of “Facing the Wind” on September 18. Listen to Linda's podcast, “Lewy Body Roller Coaster”, here. Then, on Shara in the City, Marsha's - Philly's first queer women's sports bar - is set to open on South Street on September 19. Shara Dae Howard visits with the owner to hear about her inspiration for the bar and what's to come. To learn more about listener data and our privacy practices visit: https://www.audacyinc.com/privacy-policy Learn more about your ad choices. Visit https://podcastchoices.com/adchoices
Nutritionist Leyla Muedin discusses recent advancements in the detection and prevention of Alzheimer's disease. Topics include the new FDA-approved Lumipulse blood test, the role of a ketogenic diet in improving mitochondrial health, and the significance of lifestyle changes such as social and cognitive activities. The episode also highlights promising research from the University of California Irvine on using natural compounds like nicotinamide and EGCG to rejuvenate aging brain cells and address the buildup of Alzheimer's-associated proteins. Leyla also provides insights into the difference between Alzheimer's and general dementia and emphasizes the importance of accurate diagnosis and appropriate treatments.
In this episode, editor in chief Joseph E. Safdieh, MD, FAAN, highlights articles about a promising blood test to distinguish Parkinson's disease from dementia with Lewy bodies, how CAR T-cell therapies are showing potential for patients with glioblastoma, and a new wireless electroencephalogram device that can even monitor young children with epilepsy.
Send us a textLewy Body Dementia is different from Alzheimer's dementia and affects 1.4 million people in the U.S. The Lewy Body Dementia Association helps those living with Lewy Body Dementia and their care partners with online support groups, free materials, symptom checklists and treatment options. Got questions? Lewy line at: 1-800-539-9767 lbda.orgYouTube video: lbdatv Support the show
Michelle Cain's journey as a caregiver began when her mother was diagnosed with Lewy Body dementia during the pandemic, a time already fraught with uncertainty and stress. At 47, Michelle found herself in the “sandwich generation,” balancing the needs of her own family—her husband and two sons—with the increasing demands of caring for her mother. The diagnosis came as a shock, and Michelle quickly had to navigate the complexities of her mother's delusions, the challenges of finding appropriate care, and the emotional toll of watching a parent's health decline. Despite a complicated relationship with her mother, Michelle became the primary caregiver, a role shaped by both proximity and necessity.Throughout this experience, Michelle confronted not only the practical aspects of caregiving but also deep-seated emotional issues. Her mother's illness unearthed decades of unresolved resentment and anger, forcing Michelle to process and ultimately find forgiveness. This journey was made even more challenging by the pressures of the pandemic and personal struggles within her own family, including her son's eating disorder and her ongoing commitment to sobriety. Michelle's story is one of resilience and growth—she openly shares how her caregiving role, though difficult, became a catalyst for healing and self-discovery.Michelle's insights, captured in her book “Did Mom Drop Acid?”, offer valuable lessons for others in similar situations. She emphasizes the importance of accepting help, maintaining a sense of humor, and recognizing that grief and forgiveness are complex, ongoing processes. Her candid reflections provide hope and guidance for caregivers facing their own challenges, illustrating that even in the midst of chaos, there can be unexpected gifts and opportunities for personal transformation.Thank you to sponsor: CareScoutLearn more about Confessions of a Reluctant Caregiver: https://confessionsofareluctantcaregiver.com/** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Today's Guest Mary Lou is a sought-after speaker and advocate on Lewy Body Dementia and Caregiving since writing her first book. I didn't see it coming. Scenes of love, loss, and Lewy Body Dementia. Mary Lou was inspired to write her memoir after her late husband, illustrator Nicky Zann, died from Lewy Body Dementia in 2020. Mary Lou's journey with Nicky was not her first time as a caregiver. When Mary Lou was 10 years old, her father at age 37 suffered a massive stroke that robbed him of his ability to speak as well as his employment. The oldest of three kids, Mary Lou helped her mom care for her dad and family. A former opera singer and educator, Mary Lou is internationally known as the classical music publicist slash strategist who for 50 years has helped guide the careers of celebrated artists and advised many institutions including Carnegie Hall, the Los Angeles, New York, and Vienna Philharmonic. She now adds another layer, advocate for Lewy Body Dementia awareness. Mary Lou serves on the board of the Lewy Body Dementia Resource Center of New York City. She is also an executive producer along with Renee Fleming, musician Yo-Yo Ma, and actor David Hyde Pierce, of a new documentary film about Lewy Body Dementia entitled Facing the Wind. The documentary had its world premiere at the Doc NYC Film Festival November 2024, along with a preview presentation at New York's Lincoln Center that same month. Links from May Lou https://maryloufalcone.com/ https://facingthewindfilm.com/ I Didn't See It Coming About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a weekly medical segment on ABC news Los Angeles. More from Dr. Raj The Dr. Raj Podcast Dr. Raj on Twitter Dr. Raj on Instagram Learn more about your ad choices. Visit megaphone.fm/adchoices
Lewy body dementia affects over a million people in the United States, but many people don't know much about it. It's difficult to diagnose and often misdiagnosed. A new documentary called “Facing the Wind” shines a light on Lewy body dementia, both living with it and caring for someone who has the disease. Racquel Williams talks with Philadelphia filmmaker Tony Heriza and Linda Szypula, who lives in Plymouth Meeting and whose journey caring for her husband is featured in the film. Scribe Video Center is hosting a screening of “Facing the Wind” on September 18. Listen to Linda's podcast, “Lewy Body Roller Coaster”, here. Then, on Shara in the City, we visit one of Fairmount Park's oldest buildings - the Ohio House, which dates back to the centennial World's Fair in 1876. Shara Dae Howard takes a tour and learns about the building's deep history. To learn more about listener data and our privacy practices visit: https://www.audacyinc.com/privacy-policy Learn more about your ad choices. Visit https://podcastchoices.com/adchoices
How are you abiding in Christ and seeking God in business and life?In this episode, Jeff, Jeff, and Randy discuss: Following through on what you start.Being intentional about your faith in business.Ministering to your employees and your clients.Let God show you your priorities. Key Takeaways: Discover how God has made you. The more you can cooperate and develop that, the more the magic will happen.There is power in giving people a hand up, not just a handout.Consider tithing your time - designate some of your hours as intentional time with God or with the ministry for His Kingdom.God's calling and God's timing are often different. "If you're sensing God's calling you to something, listen to that and start pursuing that, start preparing for that. Ensure it's from God and that He wants you to do that, and what your role is, then what the timing is." — Randy Price About Randy Price: Randy and Susan Price opened Right at Home in March of 2009 after they saw the fast-growing care needs of seniors in Northeast Texas. Having a father who had Lewy Body dementia (an ugly combination of Alzheimer's and Parkinson's diseases), Randy is even more passionate about caring for the patients and the caregivers.Before opening Right at Home, Randy and Susan served for 2 years as missionaries in Mexico. Previous to that, Randy worked in leadership roles in manufacturing for 17 years. Randy has a BA in Economics with a secondary emphasis in Accounting from the University of Texas at Austin. After years of prayer, counsel & thought, Randy decided to establish Community for Hope (https://communityforhope.net/testimonials/) to more effectively minister to his 400+ employees across 10+ offices in East Texas. Randy and Susan have been married for 39 years and have seven children, six in-laws, and nine grandchildren! Randy and Susan are very involved and actively serve at Sylvania church in Tyler, Texas. Connect with Randy Price:Website: https://communityforhope.net/Website: https://www.rightathome.net/northeast-texasLinkedIn: https://www.linkedin.com/in/randy-price-cfo-csa-0913a110/ Connect with Jeff Thomas: Website: https://www.arkosglobal.com/Podcast: https://www.generousbusinessowner.com/Book: https://www.arkosglobal.com/trading-upEmail: jeff.thomas@arkosglobal.comTwitter: https://twitter.com/ArkosGlobalAdvFacebook: https://www.facebook.com/arkosglobal/LinkedIn: https://www.linkedin.com/company/arkosglobaladvisorsInstagram: https://www.instagram.com/arkosglobaladvisors/YouTube: https://www.youtube.com/channel/UCLUYpPwkHH7JrP6PrbHeBxw
In part two of this two-part series, Dr. Jeff Ratliff and Dr. Per Borghammer explore the subcategories of Lewy body disease, focusing on the body-first subtype Show reference: https://www.nature.com/articles/s41593-025-01910-9
In part one of this two-part series, Dr. Jeff Ratliff and Dr. Per Borghammer examine the dichotomy that existed before his team began this project. Show reference: https://www.nature.com/articles/s41593-025-01910-9
Dr. Jeff Ratliff talks with Dr. Per Borghammer about the classification of Lewy body disease into brain-first and body-first subtypes, with a focus on the newly identified parasympathetic and sympathetic subtypes within the body-first category. Read the related article in Nature. Disclosures can be found at Neurology.org.
Dr. Michele Matarazzo interviews Prof. Irena Rektorová about her recent study on early changes in the locus coeruleus in mild cognitive impairment with Lewy bodies. Using neuromelanin-sensitive MRI, the study reveals selective vulnerability of the caudal locus coeruleus and its association with specific cognitive and other nonmotor features. The conversation explores the implications for early diagnosis, the “body-first” hypothesis, and the potential role of NM-MRI as a biomarker. Read the article.
This is the latest episode of the free DDW narrated podcast, titled “Where are scientists making waves in drug discovery?”, which covers three articles written for DDW Volume 24 – Issue 3, Summer 2023. They are called: “How pharma is targeting advances in Alzheimer's treatments”, “The start-up disrupting the field of women's reproductive health” and “India: Why is the country ramping up drug discovery research?” Cognition Therapeutics recently completed the enrolment of its Phase II SEQUEL trial for patients with mild-to-moderate Alzheimer's disease. The focus of the trial is to test Cognition Therapeutics' experimental drug, CT1812 for patients with dementia with Lewy Bodies and dry age-related macular degeneration. In the first article, Reece Armstrong speaks to Lisa Ricciardi, CEO of Cognition Therapeutics, to learn about what the company hopes to achieve with CT1812. In the second article, DDW's Diana Spencer speaks to Alok Javali, CSO of dawn-bio, a new addition to BioInnovation Institute's (BII) Venture Lab acceleration programme, about the lack of innovation in women's reproductive health and the company's plans to fill the vacuum. In the third article, I take a deeper look into why India is ramping up drug discovery research, and explores the country's innovation hubs of interest.
Mehr als nur Alzheimer: Drei Demenzformen kompakt erklärt
In the new novel Counting Backwards, a woman named Addie becomes concerned when her devoted husband, Leo, starts having vivid hallucinations. When he is eventually diagnosed with Lewy Body Dementia, her world, and their marriage, is turned upside down. The novel is based on author Binnie Kirshenbaum's own experiences with her husband. Kirshenbaum discusses the novel.
Do you want to experience the healing power of family relationships and find hope and peace amidst the challenges of caregiving? In this episode we discuss a solution. Our special guest is Susan Landeis, author of "In Search of Rainbows: A Daughter's Story of Loss, Hope and Redemption." Susan is an inspiring voice in the Alzheimer's and dementia caregiving community. Her memoir delves into her journey of caring for her mother with Lewy Body Dementia, while navigating a lifelong, complex, and estranged relationship. Susan's candid storytelling and experiences offer invaluable insights into the challenges of caregiving and the transformative power of forgiveness and healing within family dynamics. As a member of the AlzAuthors management team, Susan brings a wealth of knowledge and compassion to her work, providing support and understanding to those facing similar struggles. Her personal journey and dedication to raising awareness of dementia caregiving make her a compelling and relatable guest for today's episode. Estrangement within families can present additional challenges when taking on the role of caregiver. Navigating this complex dynamic requires open communication, patience, and a willingness to address underlying issues. Caregivers like Susan have found that caregiving can offer a pathway to reconciliation, understanding, and forgiveness, ultimately bridging the gap created by estrangement. In this episode, you will: · Discover effective coping strategies for Lewy Body Dementia, bringing peace of mind to both you and your loved one. · Learn how caregiving can become a catalyst for healing family relationships, fostering understanding and connection. · Find ways to navigate the challenges of estrangement while providing loving care for your family member. · Explore the powerful process of writing a memoir on dementia caregiving, capturing and preserving precious memories. · Gain valuable insights into managing senior health and well-being, empowering you to provide the best care possible. After the Podcast Buy “In Search of Rainbows” Read Susan's AlzAuthors Post Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors. Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast
Do you want to experience the healing power of family relationships and find hope and peace amidst the challenges of caregiving? In this episode we discuss a solution. Our special guest is Susan Landeis, author of "In Search of Rainbows: A Daughter's Story of Loss, Hope and Redemption." Susan is an inspiring voice in the Alzheimer's and dementia caregiving community. Her memoir delves into her journey of caring for her mother with Lewy Body Dementia, while navigating a lifelong, complex, and estranged relationship. Susan's candid storytelling and experiences offer invaluable insights into the challenges of caregiving and the transformative power of forgiveness and healing within family dynamics. As a member of the AlzAuthors management team, Susan brings a wealth of knowledge and compassion to her work, providing support and understanding to those facing similar struggles. Her personal journey and dedication to raising awareness of dementia caregiving make her a compelling and relatable guest for today's episode. Estrangement within families can present additional challenges when taking on the role of caregiver. Navigating this complex dynamic requires open communication, patience, and a willingness to address underlying issues. Caregivers like Susan have found that caregiving can offer a pathway to reconciliation, understanding, and forgiveness, ultimately bridging the gap created by estrangement. In this episode, you will: · Discover effective coping strategies for Lewy Body Dementia, bringing peace of mind to both you and your loved one. · Learn how caregiving can become a catalyst for healing family relationships, fostering understanding and connection. · Find ways to navigate the challenges of estrangement while providing loving care for your family member. · Explore the powerful process of writing a memoir on dementia caregiving, capturing and preserving precious memories. · Gain valuable insights into managing senior health and well-being, empowering you to provide the best care possible. After the Podcast Buy “In Search of Rainbows” Read Susan's AlzAuthors Post Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors. Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
Lisa Ricciardi, CEO, and Dr. Tony Caggiano, Chief Medical Officer at Cognition Therapeutics, are developing effective treatments for neurological disorders, particularly Alzheimer's disease and dementia with Lewy bodies (DLB). While DLB is related to Parkinson's, sharing symptoms include hallucinations, sleep disorders, and cognitive dysfunction, there are no good diagnostics to identify DLB and effective treatments. Cognition Therapeutics' lead drug candidate, an oral treatment, has shown promise in protecting neurons from the toxic effects of the pathological proteins involved in Alzheimer's and DLB. Lisa explains, "This company started in 2007, so we've had a long number of years to burnish our mission. One of the things we say is we're the beginning of the end of neurologic disorders and the start of hope for an improved future for patients. So Alzheimer's disease, in particular, has been long studied with little success, and in the last few years, we've seen some successes with monoclonal antibodies. There are a number of other approaches in clinical trials, but we have recently generated very positive data in two different trials with an oral once-a-day drug." Tony elaborates, "Lewy body dementia or dementia with Lewy bodies is a disease very much related to Parkinson's disease that's believed to be, in part, caused by pathological levels of a certain protein called alpha synuclein and particularly small oligomers of misfolded alpha synuclein." "And in Alzheimer's disease, this is largely a cognitive memory disorder as it presents. So, those two diseases are very different. Now, the idea of treating them with a single drug is somewhat unique to what we have here at Cognition Therapeutics. So our company started around the idea of developing therapies for Alzheimer's disease, and our lead molecule CT1812 or zervimesine was developed out of a screening assay where we were looking for molecules that could protect neurons or brain cells from the toxicities of this pathological amyloid protein. So, we identified CT1812 and have been developing it." #CognitionTherapeutics #BrainHealth #DementiaCare #LewyStrong #Livingwithlewy #Alzheimers #EndAlz #Alzheimersdisease #DLBAwareness #NeurodegenerativeDisease #Dementia #DementiaWithLewyBodies cogrx.com Download the transcript here
Lisa Ricciardi, CEO, and Dr. Tony Caggiano, Chief Medical Officer at Cognition Therapeutics, are developing effective treatments for neurological disorders, particularly Alzheimer's disease and dementia with Lewy bodies (DLB). While DLB is related to Parkinson's, sharing symptoms include hallucinations, sleep disorders, and cognitive dysfunction, there are no good diagnostics to identify DLB and effective treatments. Cognition Therapeutics' lead drug candidate, an oral treatment, has shown promise in protecting neurons from the toxic effects of the pathological proteins involved in Alzheimer's and DLB. Lisa explains, "This company started in 2007, so we've had a long number of years to burnish our mission. One of the things we say is we're the beginning of the end of neurologic disorders and the start of hope for an improved future for patients. So Alzheimer's disease, in particular, has been long studied with little success, and in the last few years, we've seen some successes with monoclonal antibodies. There are a number of other approaches in clinical trials, but we have recently generated very positive data in two different trials with an oral once-a-day drug." Tony elaborates, "Lewy body dementia or dementia with Lewy bodies is a disease very much related to Parkinson's disease that's believed to be, in part, caused by pathological levels of a certain protein called alpha synuclein and particularly small oligomers of misfolded alpha synuclein." "And in Alzheimer's disease, this is largely a cognitive memory disorder as it presents. So, those two diseases are very different. Now, the idea of treating them with a single drug is somewhat unique to what we have here at Cognition Therapeutics. So our company started around the idea of developing therapies for Alzheimer's disease, and our lead molecule CT1812 or zervimesine was developed out of a screening assay where we were looking for molecules that could protect neurons or brain cells from the toxicities of this pathological amyloid protein. So, we identified CT1812 and have been developing it." #CognitionTherapeutics #BrainHealth #DementiaCare #LewyStrong #Livingwithlewy #Alzheimers #EndAlz #Alzheimersdisease #DLBAwareness #NeurodegenerativeDisease #Dementia #DementiaWithLewyBodies cogrx.com Listen to the podcast here
There is an important role for cost-effective clinical biomarkers in the diagnosis of Parkinson's disease. Dr. Eduardo de Pablo-Fernández and Dr. Cecilia Tremblay discuss how accurate hyposmia and REM sleep behavior disorder can predict Lewy pathology in a non-selected population using data from the Arizona clinicopathological study on Aging and Neurodegeneration. Read the article.
In this episode of Your History Your Story, our guest is Mary Lou Falcone. Mary Lou is an internationally known classical music publicist and an advocate for Lewy Body Dementia awareness. Today we will be talking about her powerful memoir, “I Didn't See It Coming: Scenes of Love, Loss, and Lewy Body Dementia.” In her memoir, Mary Lou shares deeply personal stories, such as her father's devastating stroke in the 1950s when she was just a child and her journey as caregiver to her husband and soulmate, Nicky Zann. A 1950s rock ‘n' roll musician turned celebrated artist, Nicky passed away from Lewy Body Dementia in 2020. Don't miss this inspiring conversation about love, loss, and resilience. Music: "With Loved Ones" Jay Man Photo(s): Courtesy of Mary Lou Falcone Support Your History Your Story: Please consider becoming a Patron or making a donation via PayPal. - THANK YOU!!! YHYS Patreon: CLICK HERE YHYS PayPal: CLICK HERE YHYS: Social Links: CLICK HERE YHYS: Join our mailing list: CLICK HERE #yhys #yourhistoryyourstory #history #storytelling #podcast #njpodcast #youhaveastorytoo #jamesgardner #historian #storyteller Lewy Body Dementia resources: LBDNY.org To order "I Didn't See it Coming": MaryLouFalcone.com
Welcome to PsychEd, the psychiatry podcast for medical learners, by medical learners. This primer covers the differential diagnosis of dementia. Hosts: Dr. Alastair Morrison (PGY-1) and Dr. Angad Singh (PGY-1) Audio editing by: Dr. Angad Singh (PGY-1) Resources: MoCA: https://dementia.talkbank.org/protocol/materials/MOCA.pdf MMSE: https://meded.temertymedicine.utoronto.ca/sites/default/files/assets/resource/document/mini-mental-state-examinationmmse.pdf Beers Criteria: American Geriatrics Society 2023 updated AGS Beers Criteria® for potentially inappropriate medication use in older adults PsychEd Episode 49: Dementia Assessment with Dr. Lesley Wiesenfeld References: American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596 Francis, J. & Young, B. (2022). Diagnosis of delirium and confusional states. UpToDate. Retrieved January 31, 2025, from https://www.uptodate.com/contents/delirium-and-acute-confusional-states-prevention-treatment-and-prognosis Larson, E. B. (2022). Evaluation of cognitive impairment and dementia. UpToDate. Retrieved January 31, 2025, from https://www.uptodate.com/contents/evaluation-of-cognitive-impairment-and-dementia PsychDB. (2022, Oct 3). Introduction to Dementia. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/home PsychDB. (2024, Feb 1). Delirium. Retrieved January 31, 2025, from https://www.psychdb.com/cl/1-delirium PsychDB. (2024, Feb 9). Alzheimer's Disease. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/alzheimers PsychDB. (2023, Oct 12). Vascular Dementia. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/vascular PsychDB. (2024, Jan 23). Frontotemporal Dementia. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/frontotemporal PsychDB. (2024, Feb 5). Dementia with Lewy Bodies. Retrieved January 31, 2025, from https://www.psychdb.com/geri/dementia/lewy-body For more PsychEd, follow us on Instagram (@psyched.podcast), Facebook (PsychEd Podcast), and X (@psychedpodcast). You can email us at psychedpodcast@gmail.com and visit our website at psychedpodcast.org.
All Home Care Matters and our host, Lance A. Slatton were honored to welcome Julia Wood, MOT, OTR/L the Director of Professional & Community Education for the Lewy Body Dementia Association (LBDA). About Julia Wood, MOT, OTR/L: Julia Wood, MOT, OTR/L is an occupational therapist and international educator specializing in assessment and treatment of people with Parkinson's disease and related dementias. Julia joined the Lewy Body Dementia Association (LBDA) as director of Professional & Community Education in 2021. She co-authored the first American Occupational Therapy Association Practice Guideline for Adults with Parkinson's Disease in 2022 and serves on the Comprehensive Care Subcommittee for the World Parkinson's Congress (WPC). About the Lewy Body Dementia Association (LBDA): The Lewy Body Dementia Association (LBDA) is the leading national organization dedicated to improving the lives of Lewy body dementia (LBD) families. The Lewy Body Association (LBDA) Mission: To optimize the quality of life for those affected by Lewy body dementia, we accelerate awareness, advance research for early diagnosis and improved care, and provide comprehensive education and compassionate support. Program Provision Highlights: Support: LBDA offers a wide variety of compassionate and confidential support services for those who are symptomatic or diagnosed, their families and current or former care partners, including but not limited to: • Virtual and in-person support groups • Connecting to Lewy Buddies, lived-experience volunteers who share their time and experience with individuals and families • Opportunity to connect directly with one of LBDA's licensed social workers through the Lewy Line, a toll-free number, Monday - Friday • Assistance in identifying additional external programs or local resources (LBDA does not promote any doctor, medical center, allied healthcare provider, medication, product or treatment, nor direct referrals for residential facilities or home care agencies). Education: LBDA provides free resources and educational programming throughout the year on a wide variety of LBD topics. • 2024 Community Webinar Series: Empowerment through Education is designed to provide strategies for self-advocacy, exploration of the complex symptoms of LBD, and skills and resources to enhance quality of life. o Available to watch on LBDAtv or Mediflix • 2025 Community Webinar Series: Mastering Lewy Body Dementia Together will focus on building mastery of understanding on the complex symptoms of (LBD), continuation of providing strategies for self-advocacy and resources for support, and tactics for enhancing quality of life. o Begins January 15 • The Lewy Learning Center is a free online platform for sharing education LBD with the community and health care professionals. A go to place for on-demand learning, courses are available to watch at any time, share with friends and family members, with unlimited viewing options. • LBDA offers complimentary educational materials for individuals and families as well as healthcare provides which can be requested via lbda.org (US only) Research: LBDA facilitates, promotes and assists in the development of LBD clinical trials and research studies. • The Lewy Trial Tracker is a tool for individuals to receive information on new and currently recruiting clinical trials and studies. It is a single source of information that highlights study topics, procedures, locations and study site contact information. Registrants receive quarterly emails, and the information collected is confidential. • LBDA's Research Centers of Excellence is a network of 25 of the nation's leading academic medical research institutions connecting individuals and their families with highly-specialized physicians providing advanced diagnosis and treatment, as well as conducting LBDA research.
Dr. Vikram Karnik and Dr. Kate Wyman-Chick discuss distinguishing prodromal dementia with Lewy bodies from prodromal Alzheimer disease and the implications for clinical practice. Show reference: https://www.neurology.org/doi/10.1212/CPJ.0000000000200380
Dr. Vikram Karnik talks with Dr. Kate Wyman-Chick about distinguishing prodromal dementia with Lewy bodies from prodromal Alzheimer disease, the importance of early diagnosis, and the implications for clinical practice. Read the related article in Neurology: Clinical Practice. Disclosures can be found at Neurology.org.
Ladies and gentlemen, with honesty, tenderness and, yes, sometimes humor, the film Facing the Wind invites viewers into the lives of people with Lewy body dementia and their caregivers…real people in real time. FACING THE WIND, a sixty-minute documentary film, reveals how a mutual support community can be an antidote to despair, letting people know they are not alone. You will follow their journey, laughing and crying with them, while taking an unflinching look at dementia care with its overwhelming and isolating aspects. The struggle is real, but so is the love. Ladies and gentlemen, Lewy body dementia is not a rare disease. It affects more than 1.4 million people in America. It is the second most common form of dementia, but it still being misdiagnosed. Alzheimer's disease is the gradual decline of memory as Lewy body dementia is the roller coaster ride with ups and downs. One moment the patient can be fully present and lucid and the next be completely lost or deal with hallucinations from mild to severe. There is no cure, but this very powerful film documentary is not for those suffering with Lewy body dementia, but for the people who care for them. Many spouses and family members are thrust into being a caregiver and navigating the vast ocean of the unknown. FACING THE WIND is a starting place for caregivers and to know that it's ok to not be ok. Head over to LewyBodyResourceCenter.org for more information. If your loved one was diagnosed with Lewy body dementia, you are not alone and there are resources right now that can help you. Mary Lou Falcone, author of the book, “I Didn't See It Coming: Scenes of Love, Loss and Lewy Body Dementia”. Mary Lou Falcone, author of I DIDN'T SEE IT COMING: Scenes of Love, Loss, and Lewy Body Dementia, is internationally known as a classical music publicist/strategist who for 50 years has helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Combining communication skills with her background as a performer and educator, she now adds another layer: advocate for Lewy body dementia (LBD) awareness. Her late husband, the illustrator/painter Nicky Zann who died from LBD in 2020, was the catalyst for her book. She is also an Executive Producer of a new documentary film about LBD entitled Facing the Wind, a love story about people with Lewy body dementia, the spouses who care for them, and the remarkable community where they find sustenance and support. #lewybodydementia #lewybody #dementia #alzheimersdisease #alzheimers #parkinsonsdisease #brainhealth #medicine #filmdocumentary #documentary #health #wellness #caregiving #caregivers
Ladies and gentlemen, with honesty, tenderness and, yes, sometimes humor, the film Facing the Wind invites viewers into the lives of people with Lewy body dementia and their caregivers…real people in real time. FACING THE WIND, a sixty-minute documentary film, reveals how a mutual support community can be an antidote to despair, letting people know they are not alone. You will follow their journey, laughing and crying with them, while taking an unflinching look at dementia care with its overwhelming and isolating aspects. The struggle is real, but so is the love. Lewy body dementia is not a rare disease. It affects more than 1.4 million people in America. It is the second most common form of dementia, but it still being misdiagnosed. Alzheimer's disease is the gradual decline of memory as Lewy body dementia is the roller coaster ride with ups and downs. One moment the patient can be fully present and lucid and the next be completely lost or deal with hallucinations from mild to severe. There is no cure, but this very powerful film documentary is not for those suffering with Lewy body dementia, but for the people who care for them. Many spouses and family members are thrust into being a caregiver and navigating the vast ocean of the unknown. FACING THE WIND is a starting place for caregivers and to know that it's ok to not be ok. Head over to LewyBodyResourceCenter.org for more information. If your loved one was diagnosed with Lewy body dementia, you are not alone and there are resources right now that can help you. Facing the Wind is the latest collaboration of award-winning director Deedra Fishel and producer Tony Heriza. Their groundbreaking film Care, funded by the Ford and MacArthur Foundations, shed light on America's broken eldercare system. Deerdra and Tony both have family members with dementia and share deep empathy for those with the disease and their caregivers. Deerdra Fishel has been writing and directing documentaries and dramas for 25 years now. Her life's goal is to create complex, realistic portraits that challenge mainstream stereotypes and work to improve lives. She started her career at WNYC-TV where she produced a half-hour program on women community organizers working to save the South Bronx. She went on to write/direct RISK, a dramatic feature, which premiered in competition at Sundance and was broadcast in 35 countries. Tony Heriza's award-winning films and videos have addressed a broad range of social issues, including gentrification, immigration, racism, gender equity, sexuality, criminal justice, and peace-building. His New Day film, Care, produced with Deerdra Fishel, is an intimate exploration of home-based elder care from the POV of both workers and their clients. #lewybodydementia #lewybody #dementia #alzheimersdisease #alzheimers #parkinsonsdisease #film #filmdocumentary #documentary #mentalhealth #memory #brainhealth #medicine #wellness
My guest today is the founder and executive director of the Lewy body Resource Center. Norma's knowledge and experience with Lewy body dementia began with the personal care of her mother, Lillian, who had LBD for many years. Norma has been facilitating the only New York Metro area LBD caregivers support groups since 2008. She also leads a national group for people living with LBD which has been lauded. She served on the board of directors of the Lewy Body Dementia Association for three years before launching the LBD Resource Center in 2016 to provide much needed support and resources on more personal and connective levels. Norma worked as executive assistant to the CFO at The New York Times Company for over 20 years. While there, she served as chairperson of the work/life committee of The New York Times' women's affinity group and initiated and ran their eldercare support group. Her expertise working with the top executives at The Times, as well as her managerial experience as executive director and a co-founder of What BETTER Looks Like, a nonprofit organization which partners with communities to help individuals imagine, articulate, and create visions for a better world, has prepared her to lead the LBD Resource Center which is very dear to her heart. Ladies and gentlemen, Lewy body dementia (LBD) is the second most common form of progressive dementia, affecting more than 1.4 million Americans. Because LBD comes with a host of physical, cognitive and behavioral symptoms, it often mimics Alzheimer's disease, Parkinson's disease or a psychiatric disorder. As a result, it is widely misdiagnosed. Even as diagnoses increase, resources for people with LBD and their families still remain extremely limited. Citing this lack of resources and assistance, the Lewy Body Dementia Resource Center was founded to provide much needed services and support for people with LBD and their loved ones. Go to LewybodyResourceCenter.org or LDBNY.org for more information. #lewybodydementia #lewybody #dementia #brainhealth #mentalhealth #resourcecenter #facingthewind #LBD #misdiagnosis #Alzheimers #AlzheimersDisease #ParkinsonsDisease #medicine #wellness #psychiatricdisorders
Delanie Fischer is joined by Erika Martin, who shares about her dad's diagnosis with Lewy Body Dementia — how it's impacting her family, resources and logistics for immediate and long-term care, and how she's grieving and coping. If someone you love has been diagnosed with a terminal illness, this episode has so much to offer, and is part of our series, "Subscriber Stories."Plus:+ Finding The Right Support Group For You + Erika's Favorite Quote For Tough Days + 3 Things Helping Erika In Her Day-To-DayMore episodes related to this topic:When A Family Member Has Dementia with Kelsey Cook: https://www.selfhelplesspodcast.com/episodes/episode/24621f0a/when-a-family-member-has-dementia-with-kelsey-cookRethinking the 5 Stages of Grief with Krista St-Germain: https://www.selfhelplesspodcast.com/episodes/episode/2fc9f314/rethinking-the-5-stages-of-grief-with-krista-st-germainCaregiver Burnout: https://www.selfhelplesspodcast.com/episodes/episode/246fddd8/caregiver-burnoutCompounded Grief: Coping With Multiple Losses At Once with Stephanie Edwards: https://www.selfhelplesspodcast.com/episodes/episode/250aef7a/compounded-grief-coping-with-multiple-losses-at-once-with-stephanie-edwardsYou can join our Patreon community here: https://www.patreon.com/selfhelplessYour Host, Delanie Fischer: https://www.delaniefischer.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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