Podcasts about ctsa

University at Buffalo announces a $28.4 million CTSA grant from the NIH to build on strong foundation improving health outcomes and addressing disparities through translational science full 2138 Fri, 17 Jan 2025 15:00:46 +0000 WhCdvSrXSCwTlAY0n5NwPWOrBmPskGQ3 buffalo,news,wben,university at buffalo,sean ryan,tim kennedy,ub jacobs school of medicine and biomedical sciences WBEN Extras buffalo,news,wben,university at buffalo,sean ryan,tim kennedy,ub jacobs school of medicine and biomedical sciences University at Buffalo announces a $28.4 million CTSA grant from the NIH to build on strong foundation improving health outcomes and addressing disparities through translational science Archive of various reports and news events 2024 © 2021 Audacy, Inc.

Aujourd'hui est un épisode très spécial, car nous célébrons les 6 ans de ce podcast, mais aussi de la méthode Change ton schéma amoureux. Ces années ont été incroyables, riches en découvertes sur l'amour, les relations, et surtout, sur nos schémas de vie. Si tu es une fidèle auditrice, tu te souviendras peut-être des débuts du podcast, qui s'appelait Reprends ta vie en main, puis Change tes schémas de vie. Aujourd'hui, nous sommes encore plus proches de notre cœur de sujet : transformer nos schémas amoureux pour créer des relations alignées et épanouissantes. Dans cet épisode, voici ce que je te partage : • Les ajouts dans la méthode, comme des modules sur le sexe ou les applications de rencontre. • Un concours incroyable avec des cadeaux comme la formation complète, des livres (au choix en format broché, audio ou Kindle) et le mini-cours pour te rendre visible à l'homme de tes rêves. • Deux lives à ne pas manquer : • Le 7 décembre, où je raconte les coulisses du podcast. • Le 21 décembre, avec le tirage au sort des gagnantes du concours et des moments personnels sur la création de la méthode. Pour participer au concours, il te suffit de laisser un avis 5 étoiles avec une phrase sur ce que tu aimes dans le podcast, puis de m'envoyer un screenshot sur hello@fannygippa.com. Ce serait aussi génial si tu pouvais partager les stories que je publierai tout au long du mois de décembre pour mettre en lumière nos meilleurs épisodes. En bref, cet épisode est une invitation à célébrer ensemble tout ce que nous avons construit, à regarder vers l'avenir, et à continuer ce beau voyage.  Rendez-vous la semaine prochaine pour un épisode puissant sur comment sortir du burn-out amoureux. À bientôt ! Commande le  livre broché ou Kindle Livre audio Cours et programmes Conférence et test offert Instagram Facebook

Le retour à l'école ou au bureau s'accompagne souvent de stress. La rentrée n'est pas le seul moment, ni la seule raison à pouvoir engendrer une sensation d'inquiétude. Car si ces pics d'angoisse peuvent impacter tout le monde, à tous les âges, ils ne sont pas ressentis par tous de la même façon. Le stress peut pour certains être considéré comme un moteur, alors que pour d'autres, il sera totalement bloquant et paralysant. Alors, comment le stress nous affecte-t-il ? Sommes-nous tous égaux face à l'angoisse et l'anxiété ? Et enfin, comment gérer son stress ? Stéphanie Bertholon-Allagnat, psychologue, psychothérapeute au Centre de traitement du stress et de l'anxiété CTSA à Lyon Pierre Lubishi, psychologue clinicien et thérapeute à Kinshasa► En début d'émission, nous sommes en ligne avec le Dr. Jean Kaseya, Directeur Général du CDC Afrique (Centre africain pour la surveillance et la prévention des maladies) pour parler de l'épidémie de Mpox et de l'accès de l'Afrique au vaccin antivariolique.

Tom Weber was diagnosed as an adult with autism. We discuss his story, the resources available for people with autism in Luxembourg — along with information for the caregivers who support loved ones with autism. My guests this week are:  - Tom Weber, English - German translator, and published author - Sabine Angelsen, Director CTSA, Centre pour enfants et jeunes présentant un trouble du spectre de l'autisme - Anne Wagner, CTSA - psychologist - Nathalie Oberweis, Head of Learning & Development - Autism Luxembourg - Aleks Panzone, co-founder of T'ees Iced Tea Tom Weber, a colleague at RTL Today, catalysed the topic of autism for this show by writing about it himself when diagnosed as an adult aged 27. Through Tom's awareness-raising of neurodiversity we explore what autism is, how it can present, and what help is available to caregivers and autistic people themselves in Luxembourg. Tom eloquently describes his own personal story, the constant effort of masking, the dark periods and the changes to one's self-perception when diagnosed late. Tom Weber is an English-German translator and this lifestyle fits his requirements for a professional life very well, whilst also giving him time to pursue his own writing of prose and poetry. Tom is a published author and won first prize at the National Literary Competition in 2020. Autism is a very broad spectrum of neurodiverse traits and is more common than we may think, says Anne Wagner, CTSA - psychologist. And yet, over diagnosis can be an issue since there are frequent co-morbidities that accompany autistic people (aggression, ADHD, anxiety, depression, psychosis, for instance). There is a heightened rate of suicide amongst autistic people and a higher rate of divorce for the care-givers. Tom describes the pain of not being able to connect with people and how that can lead to deep depression, which could result in suicide if one doesn't have a strong support network. Sabine Angelsen and Anne Wagner work with children and their families at the Centre pour enfants et jeunes présentant un trouble du spectre de l'autisme (CTSA).  They see children at the point at which some form of issue has presented, but many children find ways to mask their difficulties in social settings. Nathalie Oberweis, Head of Learning & Development at Autism Luxembourg, helps people to develop skills in a safe environment through their various workshops. They provide vocational training, education, and even a day-centre in Sandweiler. They also have some home-help services and a limited number of accommodation facilities. The workplace can be quite traumatic for an autistic person. We discuss what measures an employer could put in place to help this type of mind.  It is often hard to ‘see' neurodiverse issues; they can be thought of as ‘invisible handicaps'. Aleks Panzone is just 23 years old and is the co-founder of T'ees Iced Tea. This (delicious) iced tea is produced by people with Autism in Luxembourg, aiming to raise awareness and supporting them by offering a safe working environment and decent wage. It is only made with local and natural ingredients; no added sugar and no artificial flavours. Aleks is helping people with autism live as fully integrated members of society. https://just-thoughts.net/about/#:~:text=Tom%20Weber%20was%20born%20in,publishes%20books%2C%20mostly%20poetry%20collections. www.autisme.lu https://cc-ctsa.lu/ https://plantatea.com/ https://just-thoughts.net/2023/12/07/the-stranger-behind-my-eyes-27-years-undiagnosed-autistic/ Instagram: https://www.instagram.com/teesicetea/ LinkedIn: www.linkedin.com/company/t-ees/?viewAsMember=true

Aujourd'hui je te partage un extrait du dernier atelier donné dans le programme Change ton schéma amoureux.  J'y ai enseigné comment développer une confiance & estime radicale en soi. C'est un atlier de 2h. Il est accessible en entier en replay dans le programme CTSA avec les exercices que nous avons fait ensemble !

Topics Covered In This Episode:Why Chris Carmichael stepped down as CEO of CTSIntroduction to Jeff Pierce, the new CEO of CTSA brief history of the Endurance Coaching Industry in the USThe future of personal coaching as AI and machine learning increase availability of dynamic training plans HostAdam Pulford has been a CTS Coach for more than 13 years and holds a B.S. in Exercise Physiology. He's participated in and coached hundreds of athletes for endurance events all around the world.Guest BiosChris Carmichael and Jeff Pierce were rivals leading up to the 1984 Olympic Team selection, then teammates on the 7-Eleven Pro Cycling Team. Later they both held High Performance Director positions at USA Cycling and played roles in the selection of Team USA cyclists for several Olympic Games, World Championships, and other major international competitions. Chris founded CTS in 2000 and led the company until stepping down in August 2022. Jeff spent more than 13 years as an executive for T-Mobile in telecommunications before returning to USA Cycling as VP of Athletics. He was selected to take over the CEO role at CTS and started in August 2022.Links:About CTS StoryChris's BioJeff's BioChris's IG: https://www.instagram.com/chriscarmichael1960/ Listen to the episode on Apple Podcasts, Spotify, Stitcher, Google Podcasts, or on your favorite podcast platformGET FREE TRAINING CONTENTJoin our weekly newsletterCONNECT WITH CTSWebsite: trainright.comInstagram: @cts_trainrightTwitter: @trainrightFacebook: @CTSAthlete

Aujourd'hui un épisode pour te parler de mon nouveau programme qui est la continuité de CTSA, en sa version business. On va parler entrepreneuriat, chiffre d'affaire aligné, relation à l'argent saine, au temps, légitimité et atteindre ton prochain niveau en respectant ton rythme ! (en fait c'est ça qui te fera aller dans l'extraordinaire !) CTS Mastermind Programme Change ton schéma amoureux suis-moi sur Instagram !

Dr. Chimowitz completed a Neurology residency at Tufts –New England Medical Center and a Stroke fellowship at the Cleveland Clinic. He has had faculty positions at the University of Michigan and Emory University, and is currently Professor of Neurology and Associate Dean of Faculty Development at the Medical University of South Carolina in Charleston. His main career interests are in improving treatments for patients with intracranial arterial atherosclerotic stenosis and helping to mentor the next generation of clinical and translational scientists. He has led three large consecutive NIH / NINDS funded multicenter clinical studies over the past 18 years (the WASID trial, the NIH Wingspan Stent registry, and the Stenting and Aggressive Medical Management for Preventing Recurrent stroke in Intracranial Stenosis [SAMMPRIS] trial), which have led to new standards of care for the treatment of atherosclerotic intracranial arterial stenosis. He was awarded the 2013 William M. Feinberg Award for Excellence in Clinical Stroke by the American Heart Association / American Stroke Association for this work. Additionally, he has extensive experience with mentoring trainees and junior faculty and has been the recipient of a NIH K24 award for this purpose. He is also the director of the KL2 mentoring program for MUSC's CTSA award from NIH. ------- The Institute for Stroke and Cerebrovascular Disease (UTHealth Stroke Institute) http://www.utstrokeinstitute.com/ Hosts: Joseph Fries Twitter: @UTHealthStroke Instagram: @UTHealthStroke Facebook: facebook.com/uthealthstroke Ideas and opinions are our own and this podcast is not a substitute for expert medical advice.

Aujourd'hui je te partage comment une des membres de CTSA a rencontré son homme idéal avec lequel elle attend un enfant. Tout ça en 9 mois ! On va voir comment elle a fait et ce qu'elle a mis en place. Programme Change Ton Schéma Amoureux / Cours gratuit / Instagram / Facebook /

On May 8- 9, Taiwan had its every first all girl surf competition, the Goddess Cup, at Waiao, Yilan. This episode is all about female surfers supporting each other and their newfound takeaway from event! Daisy and Cindy interviewed three wonderful female surfers from the event at the evening BBQ party. The five of us were sparked with warm mutual feelings throughout the chat where we all agreed that we enjoy supporting and being supported by other female surfers. Our guest surfers are: 1. Rebecca - The perspective of a second-time competitor. 2. Eliah - The perspective of a surfer and a mom. 3. Nancy - The perspective of a competition judge and competitor. #SurfingSisterhoodTaiwan was grateful to partake the event as the competition's hostesses. The event was only made possible thanks to all the female surfers who participated in it, the organizers @alexwanggaga @zuzu_kuo , volunteers, and some 20+ sponsors. The supported atmosphere is something beautiful that we as female surfers created within ourselves even in a competitive setting. Lastly, Daisy and Cindy would love to see your review or hear your voice message about their podcast. ❤️ Follow them for Surf vibes: @SurfCityWaiao Beach front cafe: @no9.cafe_waiao Surf hostel/ lesson: @brave_surfshop Children's surf camp: @CTSA.surf Follow Surfing Sisterhood Taiwan on Instagram: https://instagram.com/surfingsisterhoodtaiwan #衝浪雙椒 #SurfingSisterhoodTaiwan #DaisyandCindy #taiwansurf #surfers #女神盃 #goddesscup #surfcompetiton #surfergirls #womensupportingwomen #girlpower #SurfCityWaiao #yilan #surfunique ———————————————————————————————————— Daisy and Cindy are passionate surfers from Taiwan. With similar background and personality, they became close friends in 2017. Join them to learn about their surf stories, knowledge, surf terms and more! Daisy grew up in the US and Taiwan and is now working in PR & event. Cindy grew up in Israel, Canada, and Taiwan and is now working as freelancer and English teacher. They started surfing regularly since 2017. --- Send in a voice message: https://anchor.fm/surfing-sisterhood-taiwan/message

This podcast, which overviews Digital Health Innovation During the COVID-19 Pandemic, has been created by the Montefiore Einstein Innovation Biodesign Training Program. Link - https://www.einstein.yu.edu/departments/medicine/innovation/biodesign-training/ The podcast's host is Daniel Belkin, a medical student at the Albert Einstein College of Medicine. This podcast's guest is Dr. Jonathan Leff, a Professor of Anesthesiology, Professor of Cardiovascular & Thoracic surgery, and Chief of Cardiothoracic Anesthesiology. In 2020, Dr. Leff received a CTSA catalytic seed grant for the study of remote monitoring in COVID-19 patients. He is an editor for multiple journals pertaining to cardiothoracic anesthesiology and serves on the editorial board for the Journal of Cardiothoracic and Vascular Anesthesia.

Fully and Dave talk national synthetic data repositories and what we've learned after collecting and analyzing a year's worth of Covid-19 data. Dr. Payne is the Janet and Bernard Becker Professor and Founding Director of the Institute for Informatics at Washington University in St. Louis. He is also the Associate Dean for the Office of Health Information and Data Science and the Chief Data Scientist for Washington University. He holds appointments as a Professor of General Medical Sciences and Computer Science and Engineering in the Schools of Medicine and Engineering and Applied Sciences, respectively. In this capacity, he is responsible for the creation and oversight of comprehensive biomedical informatics and data science research, training, and support programs aligned with the health and life science enterprise spanning Washington University, BJC Healthcare, and a variety of regional partners. Further, he serves as the director of the Biomedical Informatics components/programs that exist under the auspices of both the CTSA-funded Institute for Clinical and Translational Science (ICTS) and the NCI-funded Siteman Cancer Center at Washington University. He earned both masters and doctoral degrees in Biomedical Informatics at the Columbia University College of Physicians and Surgeons. He is an elected fellow of the American College of Medical Informatics (ACMI), the American Medical Informatics Association (AMIA), and the American Institute for Medical and Biological Engineering (AIMBE), and he also holds leadership appointments on numerous national steering, editorial, and advisory committees, including efforts associated with AMIA, Association for Computing Machinery (ACM), National Cancer Institute (NCI), National Library of Medicine (NLM), and the National Center for Advancing Translational Science (NCATS). His research portfolio broadly focuses upon the areas of translational bioinformatics (TBI) and clinical research informatics (CRI) and includes projects focusing on: 1) knowledge-based approaches to high-throughput hypothesis discovery and data-driven decision making; 2) distributed data management and analysis in support of clinical and translational research; and 3) human-factors and workflow analysis.

Lauren, is here speaking with us today about Lysosomal Storage Disease.  Lauren has four siblings whom she loves dearly, and graduated in 2011.  She worked at a community center until COVID put a hold on social gatherings. She considers herself a social person and is grateful for the chance to get her story out into the world. ​ Lysosomal storage diseases are inherited metabolic diseases that are characterized by an abnormal build-up of various toxic materials in the body's cells as a result of enzyme deficiencies. There are nearly 50 of these disorders altogether, and they may affect different parts of the body, including the skeleton, brain, skin, heart, and central nervous system. New lysosomal storage disorders continue to be identified. While clinical trials are in progress on possible treatments for some of these diseases, there is currently no approved treatment for many lysosomal storage diseases. (Credits to RareDiseases.Org)   TRANSCRIPT SPEAKERS Lita T, Lauren, Jean, Ron Lita T  00:09  Hello, and welcome to another episode of PodcastDX, the show that brings you interviews with people just like you, whose lives were forever changed by a medical diagnosis.  I'm Lita ... Ron  00:20  and I'm Ron, Jean  00:21  and I'm Jean Marie. Lita T  00:23  Collectively, we're the hosts of PodcastDX. Our guest today is Lauren Ryan. She has four siblings whom she loves dearly. She graduated in 2011 and works at a community center. Not this year because a COVID. She's a very social person and grateful for getting her story out to the world. And today she's going to be talking to us about lysosomal disease. Jean  00:50  Hi, Lauren. Ron  00:51  Lauren, thank you for taking the time to join us today. Please start out by telling us and our listeners. What exactly is, and I hope I'm pronouncing this right, Galactosidosis Lysosomal Disease? And please for the rest of the episode, can we abbreviate this and just call it Galacto? Is that okay? Lauren  01:18  Yes, you may call it that. Galactosidosis, also known as Galactosialidosis is a condition that affects many areas of the body. The three forms of Galactosidosis are distinguished by the age at which symptoms develop and the pattern of features. Jean  01:50  And Lauren what were the symptoms that you started having and at what age did they develop? Lauren  01:57  Well, I had Galactosidosis...they diagnosed me when I was born. Jean  02:05  Okay. Lauren  02:05  So, the early infantile form of Galactosialidosis is associated with extensive swelling caused by fluid accumulation before birth, a soft out-pouching in the lower abdomen (an inguinal hernia), and an enlarged liver and spleen.  Additional features of this form include abnormal bone development and distinctive facial features that are often described as "coarse."  Some infants have an enlarged heart, an eye abnormality called a cherry red spot, which can be identified with an eye examination; and kidney disease that can progress to kidney failure.  Infants with this form usually are diagnosed between birth and 3 months; they typically live into late infancy.   The late form of Galactosialidosis shares some features with the early infantile form, although the signs and symptoms are somewhat less severe and begin later in infancy.  This form is characterized by short stature, dysostosis multiplex, heart valve problems. Lita T  04:23  Oh, that's a hard one. Ron  04:24  Yes, it is. Yeah, Lita T  04:25  Let me see if I can help you with that one: heptyl ...let's see Jean  04:28  Hepato... Lita T  04:29  Hepato ...hepato Ron  04:30  Hepato... Lita T  04:31  Oh Hepatosplenomegaly, Jean  04:35  I don't think that's it. Lita T  04:36  Okay. I think it has to do with the the liver and the spleen. Ron  04:41  Can I take a stab at it? Jean  04:42  Yeah, Lita T  04:42  Yeah. Ron  04:45  Hepato..splen...nom...ah...gally, Lita T  04:48  Okay. Anyway, Jean  04:49  One day we'll get hosts that actually know how to pronounce medical terms. But, today is not the day! I'm sorry. Lita T  04:54  Right. That's okay, go ahead, Lauren. Lauren  04:55  ...and "coarse" facial features.  Other symptoms seen in some individuals with this type include intellectual disability, hearing loss, and cherry red spot. Children with this condition typically develop symptoms within the first year of life.  The life expectancy of individuals with this type varies depending on the severity of symptoms.   The juvenile form of Galactosialidosis has signs and symptoms that are somewhat different of the other two types.  This form is distinguished by difficulty coordinating movements, muscle twitches, seizures, and progressive intellectual disability.  People with this form typically also have dark red spots on the skin, abnormalities in the bones of the spine, "coarse" facial features, a cherry red spot, vision loss, and hearing loss.  The age at which symptoms begin to develop varies widely among affected individuals, but the average age is 16.  This form is typically associated with normal life expectancy. Lita T  07:01  Thank you, thank you for sharing that. Ron  07:02  Yeah, that's... that's definitely a lot Lauren.  Can you please tell us how someone gets Galacto? Lauren  07:10  It is caused by a mutation of CTSA gene.  Galactosialidosis belongs to a larger...a large family of lysosomal storage disease, each caused by the deficiency of a specific lysosomal enzyme or protein.  In Galactosialidosis, impaired functioning of cathepsin A and other enzymes causes certain substances to accumulate in the lysosomes. Lita T  07:59  Okay, Jean  08:00  and I think we've said this of many chronic illnesses and diseases: it's...you have to become like a subject matter expert, because I think for most people, like myself included, when you mentioned lysosomes and things, I'm just...I draw a blank! Lita T  08:15  Right Jean  08:15  Because it's just...the body is so complex Lita T  08:18   It is, but basically what it is, it's a metabolic disorder. So we'll...we'll leave it at that as far as a simplistic term. And thank you, Lauren. I think our listeners will have a little bit of an understanding of what we're talking about now and we will have links on our website so that people can learn more. Also. Could you please tell us how did your condition develop? And I kind of missed when you said...when did your...when did yours... Jean  08:51  I think she said infancy, right? Lita T  08:52  Early infancy or late infancy? I don't remember what you said. Lauren  08:57  So I was diagnosed at birth. Lita T  09:00  Oh, at birth. Lauren  09:01  When I was born. Lita T  09:02  Okay. Lauren  09:03  Yeah. Lita T  09:04  Okay, and how has it developed with you over time? What have been the symptoms that you've had to ah...to deal with here? Lauren  09:15  Well, I have had like little to no symptoms over the course of the year. Like they haven't noticed any changes or anything with my disease in particular. But it's different for every person. Lita T  09:38  Sure. Ron  09:38  Right. Lauren  09:39  Living with like a chronic illness or disease or whatever. And so it's gonna be different for everybody. For me, I haven't noticed like any abnormal symptoms or whatever. Jean  10:00  I did notice that you said the cheery red spot, which is something an eye doctor would have to see like, by looking at your retina, does that affect your vision at all? Lauren  10:12  I don't think it does. No. Jean  10:14  Okay, okay. Lauren  10:14  I go see an eye doctor, a pediatric doctor every year. Jean  10:22  Okay, okay. Lauren  10:23  Just to see if my vision has changed at all. Lita T  10:29  Okay. Jean  10:31  And Lauren, how is Galacto or lysosomal storage disorder treated? Lauren  10:37  The variant that occurs in infants can be treated in several ways: So, it can be treated with intravenous (IV) enzyme replacement.  Or it can be done with bone marrow transplant, to slow the disease progression. Or umbilical cord blood stem cell transplantation, to restore missing enzymes.  Ron  11:01  Okay Lauren  11:10  And for adults, the treatment is symptomatic and supportive; for example, taking medication to control seizures.  Individuals with Galactosialidosis are encouraged to routinely see their genetic counselors, neurological, optha... Lita T  11:45  Ophthalmological Lauren  11:45  Ophthalmological, Lita T  11:52  Right, right ophthalmological I can't say it either today. Lauren  11:56  ...ophthalmological, and other specialists as symptoms arise and to keep symptoms controlled. Jean  12:08  Okay, it makes...Yeah, that makes a lot of sense. So you're treating the symptoms as they come along? And can lysosomal storage disorders...is there a...like a cure or a potential cure? I know, you said that, you know, like bone marrow transplantation can help slow the progression.  Are they thinking you know about gene editing or anything like that in the future? Lauren  12:29  There, there isn't a cure for lysosomal storage disorders, a few treatments can help.  And I actually went to St. Jude's Children's Research Hospital, in Memphis Tennessee.  And like, in the beginning, they weren't gonna do a bone marrow transplant. But they, they did research on that and found it too risky. Lita T  13:02  Okay Jean  13:03  Okay Lauren  13:04  So, for now, their doing the enzyme replacement therapy.  Which they still have to get past the FDA. Jean  13:16  Ooh... Lauren  13:16  ..which has been...it's over 10 years now... Lita T  13:22   Wow! Lauren  13:22  ...that it's been at the FDA.  So, I've been waiting over 10 years. Ron  13:29  Wow. Jean  13:30  Well, and I would have to say for all of our listeners out there: if you can donate bone marrow, it's a quick cheek swab to see if you're a match for someone who needs it. So, hopefully this interview will encourage more people to get out there. And you know, donate. Lita T  13:47  Right, Ron  13:47  Right. So, Lauren, can you tell our listeners how common are these lysosomal storage disorders?  Are they rare or they pretty common or what can you tell us? Lauren  14:00  Sure, more than 100 cases of the lysosomal storage disease have been reported. Approximately 60% of people with Galactosialidosis have the juvenile form.  Most people with this type of condition are of Japanese descent. Now I have contact with three people with Galactosialidosis. And only one of them have like, are close to me medical wise. Lita T  14:51  Okay, Jean  14:51  And yeah, I think we said earlier in another episode that less than 200,000 cases is rare. So yours is Lita T  14:59  100 Ron  14:59  Very rare. Jean  15:00  Very, very, very rare. Lauren  15:02  Yeah. Jean  15:02  Well, I'm glad that you were able to find someone to be part of you know, your group. Because um, yeah, that can help. Ron  15:09  What I find interesting too is the last thing she said about most people are of Japanese descent. I mean, that's pretty specific Lita T  15:18  Of the...of the...adult and juvenile right. The one that's from birth...not necessarily right? Jean  15:24  Okay. Ron  15:25  So, so Lauren, what was the first symptom or the symptoms that first made you realize... Jean  15:32  or your parents? Ron  15:33  Yeah, it was at birth.  Yeah, Lita T  15:33  I guess her parents.  Yeah. Ron  15:35  What was the first symptom that made your parents realize that something was different? Yeah. Lauren  15:43  Well, when I was born, I had extra abdominal fluid Ron  15:51  Okay Lauren  15:51  So, I had extra fluid, like in my stomach area. And then basically, they took like a biopsy of skin from me, and my mom, and dad. To test if...to see if anything was...wrong. Or anything? Lita T  16:15  Okay. Well, at least they had an idea. And where to look with it, which is good. Jean  16:20  Yeah. But that's got to be tough. I mean, you know, you have a new infant and here, they're gonna take a biopsy. Ron  16:24  Right, Lita T  16:25  Right. Jean  16:25  Um, Lauren, do you have...do you know if there are any studies currently going on? Either to try to find a cure or improve overall symptoms? Lauren  16:36  I know that my researcher at St. Judes Children's Research Hospital actually has done is done everything that she can do. So, now it's up to the FDA to approve it. Lita T  16:53  Okay, okay Jean  16:55  Okay. Lita T  16:55  So, the research, the research has been done, but it's got to get approved. Ron  16:59  Wow. 10 years. Jean  17:00  Yeah. Lauren  17:01  Which has been taking like a long time to do! Ron  17:05  Right. Lita T  17:06  I wonder if...if because it's so rare. If that's what's causing the delay? Ron  17:11  Yeah. Lauren  17:12  Yeah, that's my guess. But the good thing is, I think my one brother is going to college for genetics. Jean  17:22  Ooooh! Lita T  17:23  Oh, wow! What a...talk about a special...special family bond there. Ron  17:28  Yeah Lita T  17:28  That's wonderful. Oh, wow. Lauren  17:31  Yeah.  He wants to find like a treatment because he doesn't...he says he wants me to live life to the fullest!  And he doesn't want to see me suffer anymore.  So... Lita T  17:48  Amazing. Ron  17:48  Yeah.  Hey, Lauren, what..what role, I guess for lack of a better word, self care. What do you do for yourself every day? Lita T  18:01  To help you get through this? Well...yeah... Jean  18:03  Does ice or heat or swimming, you know, pool therapy... Lita T  18:07  Is anything that makes you feel better. Ron  18:09  Right Lauren  18:09  Well, I have a lot of arthritis in my hip especially. So, I like to do like...a warm shower. Or just any swimming or anything is really good for your joints and stuff. Lita T  18:30  Sure Ron  18:31  Okay Jean  18:32  Yeah. actually we just we were speaking with someone a little bit ago. And she designed she's designing swimsuits. Ron  18:39  Adapted Lita T  18:39  Adaptive Jean  18:40  Adaptive swimwear because it's it's such a great Ron  18:45  Need? Jean  18:46  Yeah, they're such a great need. And there's...it's such a great thing to you know, a nice warm therapy pool is very...is fantastic for almost everyone. Lita T  18:55  Right. Lauren...well, you already mentioned that your...your brother wants to go into geneticists...geneti...seas Jean  19:01  Geneticists? Lita T  19:01  I can't talk...not much at all.  Genetics to help you. What other help has your family or friends done to ah... Jean  19:11  Along your healthcare journey? Lita T  19:12  Yeah, to get you through your healthcare journey? Ron  19:14  We are all struggling today. Lita T  19:14  I'm just gonna stumble all over my words. Lauren  19:16  Well, I have three people and health care in my family. Jean  19:24  Wow. Lauren  19:24  So, they know a little bit about my disease. Now my mom is a nurse. So, she knows more about my condition than about like anything else.   Like she reads up on it, like a lot. And just having like a mom that knows. Like, from like a disease standpoint having a mom that knows what she's doing and stuff...it's really helpful and encouraging! Lita T  20:09  That's very important.  Yeah, that's fantastic! Very important. So good support. Jean  20:13  Yeah. Yeah, Lita T  20:14  Right. Could you tell our listeners: what's the best advice that you've heard to cope with having a rare disease? And what advice would you give to somebody that has been recently diagnosed with a rare disease? Lauren  20:30  The best advice for me, I think, cuz I'm very short. Short. I'm 4'3", Lita T  20:41  Okay. Lauren  20:42  So, it affected my growth.  So, lots of times my mom would Lauren  20:50  They say: "Good things come in small packages!" Jean  20:54  Awww.... Ron  20:54  (Chuckle) Lita T  20:54  I love that!  I love that! Yes, yes. Excellent, excellent. Lauren  20:58  It's something that I believe is good.  Like...it's like...common.  A lot of people with rare  diseases say: "good things can come in small packages." Ron  21:12  Right Lauren  21:12  And just for anybody that's been diagnosed, I would say...so, I'm a Christian...so, I would say that, like, if you weren't supposed to be here, God's the one who created you, and he has a purpose for every...everybody going through hard things in their life. At some point, everyone, everybody is going to go through something hard.  It's just, what are you going to do with the opportunity that God has given you? Lita T  21:56  Very nice. Ron  21:56  Yeah. Jean  21:57  We're lucky to have someone out, you know, someone like you out there advocating for others. And, yeah, you're an inspiration! Ron  22:04  That's definitely some great advice. Lita T  22:05  Very nice! Ron  22:06  Lauren, how can our listeners learn more about you? And do you have any social media accounts or anything like that, that you want to share with us? Jean  22:06  Yep, thank you. Lauren  22:17  Yeah, so I have an Instagram account. So, my username is: @stjude819. And then I'm also on Facebook. And I do have, like a private Facebook group on Galactosialidosis. It's  where, like people with my disease can go and we can share different things...from...about our disease that will really help other people! Jean  22:59  Okay Lita T  23:00  I will make sure that we put those links on our website so that others can can see those. That's wonderful. Thank you very much for for joining us today, Lauren. Lauren  23:11  You're welcome Ron  23:14  Well, again, we appreciate you sharing your story. I know we've learned a lot and I think the rest of our listeners have also learned a lot about Galacto. Lita T  23:25  Right and good things come in small package. Ron  23:28  Absolutely! That's some grate advice! Lita T  23:30  Yeah Jean  23:30  Well, and I...I think Lita really likes that because she's a... Lita T  23:33  I'm short. Jean  23:34  She's petite too. Lita T  23:35  Yes. Jean  23:36  So um, yeah, Lita T  23:37  I'm the shortest one in the household. Jean  23:38  Yeah. Ron  23:39  All right. If our listeners have any questions or comments related to today's show, they can always contact us at podcastdx@yahoo.com also to our website, podcastdx.com. They can reach us on Facebook, Twitter, Pinterest, or Instagram. And as always, please keep in mind that this podcast is not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health care providers with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regime and never disregard professional medical advice or delay in seeking it because of something you have heard on this podcast. Lita T  24:27  Till next week.  

"External scientific review gives us a better chance of identifying proposals that might have a big impact on the wellbeing of our community," says Margaret Schneider, director of the Pilot Studies program at the University of California Irvine. Schneider discusses her role in the creation of the CTSA External Reviewer Exchange Consortium (CEREC), which coordinates scientific review for funding applications submitted to centers that are part of the national NIH-funded CTSA consortium, which includes Harvard Catalyst.

The holiday season can be a stressful and anxiety provoking time especially for those suffering from a brain injury. So, what can we do to better manage these situations? Today, we will hear from Dr. Thea Gallagher, Doctor of Psychology from Penn Medicine, to discuss the cause of anxiety during these times. We will also learn techniques and strategies we can use to reduce stress and make the holidays joyful. Thea Gallagher, Psy.D., is an Assistant Professor and the Director of the Outpatient Clinic at the Center for the Treatment and Study of Anxiety (CTSA) in the Perelman School of Medicine at the University of Pennsylvania. Dr. Gallagher completed her Psy.D. in Clinical Psychology at Philadelphia College of Osteopathic Medicine. Dr. Gallagher joined the CTSA in 2014 after the completion of her clinical internship at Holcomb Behavioral Health Systems. Clinically, Dr. Gallagher specializes in Prolonged Exposure Therapy (PE) for PTSD, Exposure and Response (Ritual) Prevention (EX/RP) for OCD, and cognitive-behavioral treatments for social anxiety, panic disorder, specific phobias, and generalized anxiety.

Did you know that you can now text your therapist? For the longest time, talking about therapy has been considered taboo, but we’re here to break down that stigma, as a part of our ongoing series on mental health. After hearing from our guests, we hope you’ll feel more comfortable speaking about therapy as well! First up, let’s hear from two mental health experts, Haley Jakobson and Daniel Olavarria, who have some strong opinions on when and if Gen Z should be using digital therapy. Later on, you’ll hear from Dr. Elizabeth Turk-Karan who is a clinical psychologist at the Center for the Treatment and Study of Anxiety at The University of Pennsylvania. So let’s get this convo started about therapy: the good, the bad and everything in between. Stay connected with our guests from today’s episode to continue the conversation: Daniel Olavarria is a licensed psychotherapist in NYC. He runs a private practice called The City Psychotherapy and sees people who are trying to improve lives and their relationships. You can find more information about Daniel at thecitypsychotherapy.com and you can follow him on Instagram @thecitypsychotherapy. Haley Jakobson is a writer and producer, as well as the digital content producer at My Wellbeing, a digital therapy matchmaking platform in NYC. You can follow her on Instagram @haleyjakobson where she posts her poetry, her creative nonfiction essays, and info about her plays at Brunch Theatre. Want to try out My Wellbeing and find your therapist match today? Click here to fill out the survey on the My Wellbeing website. Dr. Elizabeth Turk-Karan is a clinical psychologist at the Center for Treatment and Study of Anxiety at The University of Pennsylvania. The CTSA at Penn is a world recognized clinic, which provides evidence-based cognitive-behavioral therapy to children, adolescents, and adults with anxiety disorders. Dr. Turk-Karan is the Director of Practicum Training at the center and she often teaches workshops and writes for professional papers. You can continue the conversation with the CTSA on Facebook and following @Center4Anxiety on Twitter. Want to be featured on an upcoming episode of The Conversationalist podcast? Here’s what to do: Follow us on Instagram @theconversationalist Rate our podcast and leave us a review on iTunes or on the Apple Podcasts app. DM us on Instagram to tell us when you've completed steps one and two and what username you used to subscribe and leave the review, and we'll give you the insider access on how to get featured! Interested in joining Sophie on her mission to unify the world? Follow @theconversationalist on Instagram and Twitter, like us on Facebook, and subscribe to us on YouTube to give your perspectives on the topics we covered this season! You can also apply to become a Brand Ambassador or join our Online Community to connect with other passionate Conversationalists around the world. Thanks for joining the conversation with us and we’ll see you next week! Support the show: https://www.linkedin.com/company/theconversationalist/ See omnystudio.com/listener for privacy information.

Enter into today's readings with reflections from women in our community. Dr. Judith Marie Kubicki, CSSF, is a Felician Franciscan Sister from Buffalo, New York. Previous to her faculty appointment at Fordham, she served as Academic Dean at Christ the King Seminary, a Graduate School of Theology in East Aurora, New York. Dr. Kubicki has degrees in music, English, and theology. She serves as liturgical music reviewer for the ecumenical liturgical journal Worship and writes a column on hymnody for the GIA Quarterly. She is a past president of the North American Academy of Liturgy (NAAL) and former convener of its Liturgical Theology Seminar. She currently serves as convener for the Liturgy/Sacraments Topic Session for the CTSA. Dr. Kubickis current research is on the theology of classic Christian hymn texts.

StraightRed welcomes Bruce Talbot as guest for this episode. Can Reds reach the playoffs? Will flags improve the atmosphere? Are season ticket holders really CTSA members? Plus a guaranteed laugh in Broadfield Buzz...this pod has it all!

Bonjour à toutes et à tous et bienvenue dans l'épisode 14 du Podcast Damocles ! Avec un peu de retard, dont on est bien désolé, on vous propose pour cet épisode de rentrée tardive de parler de la médecine des forces. Au programme de cet épisode: Signaux faibles - Cécile : Le sommet Russie-Afrique. - Nico : Grom 2019. - Yann : Refus de l'entrée dans l'UE de l'Albanie et de la Macédoine du Nord. - Waël : Dreamworks provoque une crise diplomatique "Abominable". Pause Whisky (une fois n'est pas coutume) et recommandations du mois : - Cécile: BD "Le Chateau des Animaux" de Delep et Dorison - Waël : Films "La mort de Staline" et "The laundromat" - Nico: Livre "Factories of death" de Sheldon H. Harris - Yann : Livre "Sapiens: une brève histoire de l'humanité" de Yuval Noah Harari Qu'est ce qu'on boit ? Whisky Peat and Peat, batch 24 de Jean Boyer: https://www.prestigewhisky.fr/jean-boyer/1290-tasty-creations-peat-peat-jean-boyer-43.html Chroniques : - Cécile: "La prise en charge médicale en OPEX" Extrait sonore: M.A.S.H, S01E01 Documentation: https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=1&ved=2ahUKEwiV6qLWiMLlAhW4AWMBHeDoB_gQFjAAegQIABAC&url=http%3A%2F%2Fwww.ecole-valdegrace.sante.defense.gouv.fr%2Flayout%2Fset%2Fprint%2Fcontent%2Fdownload%2F6078%2F72285%2Ffile%2F01%2520Bombert%2520C.%2520Op%25C3%2583%25C2%25A9ration%2520Serval-%2520int%25C3%2583%25C2%25A9r%25C3%2583%25C2%25AAt%2520du%2520Patient%2520evacuation%2520coordination%2520cell.%2520M%25C3%2583%25C2%25A9decine%2520et%2520Arm%25C3%2583%25C2%25A9es%25202015-4-325-9.pdf&usg=AOvVaw3KspK1cFIKxjULUHOYHauu - Waël: "La guerre au chevet de votre santé" Extrait sonore: "L'Homme qui valait 3 milliards" Documentation: https://www.asafrance.fr/images/cts_plaquette_2015_PLYO_Centre_de_transfusion_sanguine_des_armees.pdf https://www.lesechos.fr/thema/ETI-innovation-luxe-mode-2017/proteor-revolutionne-lorthoprothesie-1015319 https://www.defense.gouv.fr/sante/actualites/attentats-le-ssa-en-1re-ligne http://www.assemblee-nationale.fr/14/cr-cdef/15-16/c1516020.asp http://www.assemblee-nationale.fr/14/cr-cdef/15-16/c1516029.asp https://www.francetvinfo.fr/faits-divers/terrorisme/attaques-du-13-novembre-a-paris/les-formateurs-ont-vecu-tout-ca-le-sang-le-choc-depuis-le-13-novembre-la-medecine-de-guerre-est-enseignee-aux-futurs-medecins_2461130.html Nico: "Il faut sauver le soldat Ryan: médecine des forces spéciales" Extrait sonore: "Black Hawk Down" Documentation: https://www.defense.gouv.fr/sante/actualites/entrainement-des-equipes-medicales-aux-cotes-des-forces-speciales https://www.sfmu.org/upload/70_formation/02_eformation/02_congres/Urgences/urgences2007/donnees/pdf/88_paul.pdf https://www.defenseone.com/technology/2018/05/special-operations-forces-are-changing-combat-medicine-jury-rigged-hospitals-and-freeze-dried-blood/148522/ - Yann: "Le PTSD au sein de l'armée française" Extrait sonore: Patton (1970) de Franklin J Schaffner Documentation: http://www.absp.be/wp-content/uploads/2016/12/A.-Dabila-L%E2%80%99arme%CC%81e-franc%CC%A7aise-face-aux-nouvelles-blessures-de-guerre-ABSP.pdf Et si vous voulez donner votre sang au CTSA, c'est ici que ça se passe: https://www.defense.gouv.fr/sante/notre-expertise/transfusion-sanguine/ctsa-le-don-du-sang Encore une fois, un grand merci à SCOTCH pour l'habillage sonore, de même qu'à l'honorable juge Perraud pour le matériel d'enregistrement ! Vous souhaitant une bonne écoute, n'hésitez pas à nous faire un retour sur Twitter (@PodcastDamocles), sur iTunes ou par courriel (podcast.damocles@protonmail.ch) ! Au mois prochain !

An interview with Sam Jordan, current chair of the CTSA. A opportunity for him to give his reply to criticism, as well as increase understanding about what the CTSA do and why they are needed.

Stephen Barker, Dean of UC Irvine's Claire Trevor School of the Arts and Director of the UCI Museum and Institute for the Art of California joins host Janeane to highlight events coming up in the fall, what freshman/transfer students can do to get enmeshed in campus life and CTSA events, what makes CTSA such an outstanding school, and more. Plus, Dean Barker will discuss his background and some of his experiences since joining UCI. Stephen Barker, Dean of the Claire Trevor School of the Arts and Director of the UCI Museum and Institute for the Art of California, has been Chair of Drama, Chair of Art, Faculty Assistant to the Chancellor, and Director of the UC-wide Education Abroad Program in France. He was previously a professional actor, director, dancer, choreographer, musician, and advertising executive. He now works internationally in critical theory and aesthetics. Stephen Barker has written and edited books and articles on numerous artists and philosophers, and has recently translated several volumes by French philosophers for Stanford University Press. Barker is a founder of the journal Derrida Today and is on the faculty of the London Graduate School. He lives in Irvine and Provence with his wife Michelle, a retired clinical psychologist. For more information, visit: http://drama.arts.uci.edu/faculty/stephen-barker

Season 3 of the podcast comes to a close with Steve Okey’s conversation with Greg Hillis of Bellarmine University! They met up at this past summer’s CTSA annual conference to talk about how a year at Bible college led to a career teaching theology, the gifts and challenges of inter-church marriages, and his interest in and connection to Thomas Merton and the Abbey of Gethsemani in Kentucky. Greg also talks about his Thomas Merton-inspired tattoo and makes his case for Saint José Bautista.   Dr. Gregory Hillis is an Associate Professor of Theology at Bellarmine University in Louisville, KY. He has BA degrees from Rocky Mountain College, and he earned his MA and PhD from McMaster University. He has done research on Patristic theology, particularly Cyril of Alexandria, but more recently has focused on the life and work of Thomas Merton. He has published in Studia Patristica, America Magazine, and First Things He also writes the blog My Unquiet Heart, and has previously written for Daily Theology. Special thanks to the Catholic Theological Society of America for providing the opportunity for this episode to be recorded at its 2017 annual convention.

Welcome to the finale of season 1 of the podcast! As we go into hiatus until the new year, feast your ears on this insightful and funny conversation between Steve Okey and Natalia Imperatori-Lee! In this episode, they talk about the necessity of friendship in theology, how she became interested in Ecclesiology (the study of the Church), and her efforts to help Hispanic and first-generation college students cultivate a wider imagination about the professional opportunities they can have in life.   Dr. Natalia Imperatori-Lee is an Associate Professor of Religious Studies at Manhattan Collegein Riverdale, NY. She earned her BA from Fordham University, her MA from the University of Chicago Divinity School, and her PhD from the University of Notre Dame. Her research interests focus on Ecclesiology, with a particular interest in feminist theology, Mariology, and the Church. Her current book project (which she discusses in the episode) is on the importance of narrative in Catholic Ecclesiology. She is also the co-editor (with Julia Brumbaugh) of Turnings: Theological Reflections on a Cosmological Conversion: Essays in Honor of Elizabeth A. Johnson (Michael Glazier, 2016), a forthcoming festschrift in honor of Fordham theologian Beth Johnson. The Daily Theology Podcast was very fortunate this summer to record several conversations at the 70th annual convention of the Catholic Theological Society of America (CTSA). This is the fourth and final of these conversations, and we are grateful to the CTSA for making them possible.

Welcome to the penultimate episode of season 1 of the podcast! For our second to last offering, we have Stephen Okey’s conversation with Tobias Winright of Saint Louis University. They met up at this past summer’s CTSA convention in Milwaukee, WI, where they talked about how Prof. Winright’s background in law enforcement shaped his work in moral theology, his newer work in health care and bioethics, and what it means to be a public intellectual. They also look at his love of puns and Marvel comics! Tobias Winright is the Hubert Mäder Endowed Associate Professor of Health Care Ethics at the Albert Gnaegi Center for Health Care Ethics at Saint Louis University and an Associate Professor of Theological Ethics in theDepartment of Theological Studies at SLU. He previously taught at Simpson College in Indianola, IA and Walsh University in North Canton, OH. He earned his AA in Liberal Arts from St. Petersburg Junior College, his BA in Political Science from University of South Florida, an MDiv from Duke University Divinity School, and an MA and PhD in Moral Theology from the University of Notre Dame. Widely published, he has written and edited several volumes, including After the Smoke Clears: The Just War Tradition and Post War Justice (Orbis, 2010, co-authored with Mark Allman) and Green Discipleship: Catholic Theological Ethics and the Environment (Anselm Academic, 2011). Most recently, he and Laurie Johnston co-edited Can War Be Just in the 21st Century? (Orbis, 2015). His work can also be found on the Catholic Moral Theology andPolitical Theology Today blogs. The Daily Theology Podcast was very fortunate this summer to record several conversations at the 70th annual convention of the Catholic Theological Society of America (CTSA). This is the third of four such conversations, and we are grateful to the CTSA for making these possible.

For our tenth episode, the podcast welcomes Vincent J. Miller of the University of Dayton! Vince spoke with Stephen Okey at this past summer’s CTSA convention in Milwaukee, WI. They talked at length about Vince’s work on globalization and theology, with a particular focus on taking the virtue of solidarity as both a diagnostic lens and prescription for thinking about globalization. They also talked about how growing up in Pittsburgh during the implosion of the US steel industry has shaped Vince’s theology, the fragmentation and subtlety of zeitgeists, and Vince’s defense of “Kumbaya.” Vincent J. Miller is the Gudorf Chair in Catholic Theology and Culture at theUniversity of Dayton in Dayton, OH. He was previously an associate professor of theology at Georgetown University in Washington, DC. He earned his master’s and doctoral degrees in theology from the University of Notre Dame. He is the author of Consuming Religion: Christian Faith and Practice in a Consumer Culture (Continuum, 2005). He has written for numerous scholarly journals, including Theological Studies, Horizons, and Liturgical Ministry, as well as popular journals like America. The Daily Theology Podcast was very fortunate this summer to record several conversations at the 70th annual convention of the Catholic Theological Society of America (CTSA). This is the second of four such conversations, and we are grateful to the CTSA for making these possible.

This week’s podcast episode features a very special conversation with Tom O’Meara! Amanda Osheim and Stephen Okey spoke with Tom about his long and prolific career in theology, beginning with his joining the Dominican Order in the 1950’s. Tom shared with us his experience of formation and education before, during, and after Vatican II, how he got involved with the ecumenical movement, and the importance of liking people if one wants to be a teacher.   Thomas F. O’Meara, OP is Professor Emeritus of the Department of Theology of the University of Notre Dame in South Bend, IN, where he taught from 1981-2002. He is a member the Dominican Order and was ordained a priest in 1962. He is widely published, and his books include Thomas Aquinas: Theologian (University of Notre Dame Press, 1997), Theology of Ministry (Paulist Press, revised 1999), and Vast Universe: Christian Revelation and Extraterrestrials (Liturgical Press, 2012). If you are interested in more of Tom’s story, he has also written an autobiography: A Theologian’s Journey (Paulist Press, 2002). In 2014, over forty theologians gathered in his honor to discuss the future of ecclesiology; the resulting text was published as A Church with Open Doors: Catholic Ecclesiology for the Third Millennium (Michael Glazier, 2015). The Daily Theology Podcast was very fortunate this summer to record several conversations at the 70th annual convention of the Catholic Theological Society of America (CTSA). This is the first of four such conversations, and we are grateful to the CTSA for making these possible.

http://www.einstein.yu.edu - Emil Kakkis, M.D., Ph.D., president of Everylife Foundation and Ultragenyx Pharmaceuticals, presents "Improvement of the Development Process for Rare Disease Therapeutics" at the 2013 "Transforming Clinical and Translational Research" symposium hosted by the Harold and Muriel Block Institute for Clinical and Translational Research at Einstein and Montefiore (ICTR).

http://www.einstein.yu.edu - Christopher Chute, M.D., Dr.PH., professor of medical informatics at the Mayo Clinic's Center for Clinical and Translational Science, presents "Informatics as a Catalyst for the Evolution of Biology and Medicine" at the 2013 "Transforming Clinical and Translational Research" symposium hosted by the Harold and Muriel Block Institute for Clinical and Translational Research at Einstein and Montefiore (ICTR).

http://www.einstein.yu.edu - Nirav Shah, M.D., M.P.H., New York State Health Commissioner, presents "Conducting Policy Reform & Research in the Era of Health Care Reform" at the 2013 "Transforming Clinical and Translational Research" symposium hosted by the Harold and Muriel Block Institute for Clinical and Translational Research at Einstein and Montefiore (ICTR).

http://www.einstein.yu.edu - Christopher Austin, M.D., director of the National Center for Advancing Translational Sciences (part of the NIH), presents "Catalyzing Translational Innovation" at the 2013 "Transforming Clinical and Translational Research" symposium hosted by the Harold and Muriel Block Institute for Clinical and Translational Research at Einstein and Montefiore (ICTR).

1) Human herpes 6 virus encephalitis and 2) Topic of the month: Stroke trials. This podcast for the Neurology Journal begins and closes with Dr. Robert Gross, Editor-in-Chief, briefly discussing highlighted articles from the print issue of Neurology. In the second segment Dr. Joanna Jen interviews Dr. Mina Bhanushali and Sarah Kranick about their paper on human herpes 6 virus encephalitis and stem cell transplantation. Dr. Adam Numis is reading our e-Pearl of the week about ictal syncope. In the next part of the podcast Dr. Brett Kissela interviews Dr. Clay Johnston about CHANCE trial. All the participants have disclosures.Dr. Jen serves as an Associate Editor of Frontiers in Neuro-otology and Section Editor of Experimental Brain Research and receives research support from the FDA.Ms. Kranick is a staff member of the National Institute of Health.Dr. Bhanushali Is an employee of the National Institute of Health.Dr. Numis serves on the editorial team for the Neurology® Resident and Fellow Section. Dr. Kissela serves on scientific advisory board for Allergan, Inc.; has received funding for travel and speaker honoraria from Allergan, Inc.; has received research support from the NIH, will receive compensation from Reata Pharmaceuticals, Inc. for serving on the Event Adjudication Committee for the BEACON study, which they are sponsoring. and provides medico-legal reviews.Dr. Johnston serves as Co-Editor-in-Chief of Journal Watch Neurology; serves as Vice Editor of Annals of Neurology; is co-holder of patent on the RNA panel to identify TIA and risk stratify; Stryker Neurovascular, Boston Scientific, Kaiser-Permanente, NCRR/NCATS, CTSA, AHA/ASA, Bugher Award and the NIH and provided expert testimony in legal proceedings for GlaxoSmithKline.

Getting a new drug or treatment from the lab to the clinic, where it can be used to improve the health of patients, takes time. To speed up this process, in 2006 the National Institutes of Health launched a new science award program - the CTSA. In this podcast, we hear how the program is affecting child health research in the US. The results of an initial evaluation are encouraging, but there's room for improvement says pediatric researcher Charles Huskins. See acast.com/privacy for privacy and opt-out information.

Audio Podcast Part 2Aired date: 5/13/2011 8:00:00 AM Eastern Time

Video Podcast Part 2Aired date: 5/13/2011 8:00:00 AM Eastern Time

Video Podcast Part 1Aired date: 5/13/2011 8:00:00 AM Eastern Time

Audio Podcast Part 1Aired date: 5/13/2011 8:00:00 AM Eastern Time

Enhanced Video PodcastAired date: 9/28/2010 8:00:00 AM Eastern Time

Enhanced Audio PodcastAired date: 9/28/2010 8:00:00 AM Eastern Time

Dean Margaret Grey describes the Yale School of Nursing’s long and deep history of community engagement. YSN’s strength in the community has helped set the direction for Yale’s Clinical and Translational Science Award. Yale nurses have also served as a resource to other CTSA sites nationally.

Dr. Sandra Alfano, chair of the Human Investigations Committee at Yale, talks about how she’s working with other institutions to improve the way IRBs – or human subject committees -- work. Institutions that have received CTSA funding from the NIH are sharing best practices in the complex process of proposal approval.