Podcast appearances and mentions of Jane Gregory

Today we're reconnecting with a guest who many of you will remember from one of our most popular episodes a couple of years ago. Sara Barrick, formerly Sara Bidler, has returned to share more of her invaluable insights. Since we last spoke, Sara has published her book "Demystifying Misophonia," which I highly recommend to all our listeners. As a licensed marriage and family therapist specializing in misophonia and trauma healing, Sara brings a unique perspective on understanding misophonia as a complex syndrome rather than a single condition. In our previous conversation, she opened many eyes to the role of the nervous system and implicit learning in our reactions to triggers. Today, we'll dive deeper into these concepts and explore the pathways toward healing that Sara has discovered through her work.Book website: Demystifying MisophoniaLink to purchase on AmazonInstagram: @misophoniahealing Facebook: Sara Barrick -----Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Jo works in project management for the NHS in the UK. Jo's greatest miso issue currently is her noisy apartment which has exacerbated her condition, leading to a lot of stress and frustration. Jo reflects on her childhood, particularly her relationship with her father, who has OCD and is a noisy person. She reflects on the challenges of navigating work environments, social connections, and family dynamics while managing her condition. Jo also explores the impact of misophonia on her relationships and the coping strategies she uses.   -----Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

In the second episode of the series "Between Two Ears", I share my recent trip to Iowa City to participate in a groundbreaking misophonia research study led by Dr. Sukhbinder Kumar — a continuation of his earlier work on mirror neurons and the motor basis of misophonia. This new study explores the social context of trigger reactions and involved time in an MRI chamber while exposed to common misophonic triggers.I talk about what it was like to undergo the study, the misophonic challenges(!), and why I believe it was worth it — not just for science, but for personal growth and understanding. I also reflect on meeting Dr. Kumar in person, our conversation about the deeper roots of misophonia, and why this research made me hopeful for the future. I hope to have Dr. Kumar on a regular episode of the podcast in the future!If you're in the area or able to travel, I encourage you to consider participating in studies like this. They matter.Photos and more on social. Here's a link to the lab: https://interoception.lab.uiowa.edu/misophonia-research   -----Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Stacy is an accomplished brand and creative strategist whose journey with misophonia began long before the condition even had a name. Stacy takes us through her early experiences participating in a college study on sound sensitivity back in the 1980s, her lifelong struggle with certain trigger sounds—especially from her mother—and how these experiences shaped her personal and professional life. Stacy reflects on the complex interplay between her upbringing, her father's bipolar disorder, and her own recovery from food addiction. We dive into how misophonia has affected her relationships, from family dynamics to workplace challenges, and how she's navigated those spaces while maintaining a successful career. It's a deeply personal, thoughtful conversation about coping, connection, and the ongoing need for understanding and research. -----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Carlie is up in northern Alberta, of the great independent nation of Canada. Carlie shares her personal misophonia journey, her experiences with therapy through the years, and her path to self-discovery and understanding her neurodivergence. She highlights the importance of nervous system regulation, the impact of trauma, and the need for supportive environments in managing misophonia. We talk about autism and ADHD, the recurring topic of family dynamics, emotional availability, and her new focus which is to turn her learnings into a coaching platform to help others figure out their own individual paths to healing.You can reach her at womenunmasked.ca and womenunmasked on Instagram. -----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

I'm excited to have Dr. Lauren Harte-Hargrove, executive director of the Misophonia Research Fund (MRF). We talk about this fund's origins, and the evolution of research around misophonia. We start by getting a little into her background in neuroscience and her transition to the nonprofit sector. About the MRF and current research talk about some current focus areas of research, including the prevalence of misophonia, potential treatments, and the integration of AI in research. Lauren also raises some important issues like the significance of community perspectives in shaping research priorities and the challenges of conducting studies with diverse populations. Finally we also talk about the funding landscape in general in light of recent turmoil in federal funding. But overall, Lauren rightfully expresses optimism for future developments and the power of partnerships in advancing misophonia research.  https://www.misophoniaresearchfund.org/-----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Cris Edwards is a person who experiences a disability known as Misophonia. What is it? Cris is best at explaining. However, in part, this condition causes people who have it to react to sounds and other stimuli most of us take for granted and can ignore. As with many of our guests, I met Cris through our own Sheldon Lewis. By the way, because of Sheldon, Cris and his nonprofit use accessiBe. However, I get ahead of myself.   Cris went through school and, in fact life with manifestations of Misophonia. As he tells us, he also has ADHD. Many people with misophonia do exhibit other conditions as well. As Cris explains, until fairly recently this condition was not even recognized nor taken seriously. Cris tells us how he lived his life with this condition and how today he is dealing with it somewhat better than before.   In 2021 Cris founded soQuiet, a 501C3 corporation to help those with Misophonia. We will get to learn how even AI today is helping people deal with this issue.   Cris and I talk a lot about not only Misophonia, but how people can better exercise their minds to learn how better to conduct introspection and exercise their brains to better take care of their whole world. I hope you like what Cris has to say. Lots to think about here.       About the Guest:   Cris Edwards, MFA CPS, is the founder of soQuiet, a 501[c]3 tax-exempt nonprofit organization dedicated to providing free and accessible advocacy, resources, and support for all people whose lives are affected by misophonia, a multi-sensory sensitivity disorder.    Cris has struggled with what we now know as misophonia for over 40 years, since way back in the early 1980s, decades before there was any recognition, or even a name, for this condition. Years later, when connecting the dots in his life looking backwards, Cris can see just how much misophonia had an impact on his life, from affecting his schooling to causing barriers to employment and more.    Cris was able to complete college and grad school, earning a Master of Fine Arts in Directing. But, he always also wanted to help people to live better lives with a disorder like misophonia.   During the COVID pandemic, since there was no live theatre happening for an unknown amount of time, Cris decided to start a nonprofit which focused on misophonia and that worked to be accessible to all and to approach advocacy from the viewpoint of someone with lived experience of struggling with misophonia. soQuiet was born and has grown quickly in the four-ish years of its existence.   soQuiet has provided many "firsts" to the misophonia community, sometimes called the misosphere. Cris and the soQuiet team launched the first misophonia student research grant program, the first comprehensive peer support program for misophonia, and has mailed thousands of free misophonia information cards to six continents at no charge, among many other successes.   Cris is also active in the recovery community having gotten sober in 2017. He is a Certified Peer Specialist [CPS] as well as an occasional theatre director and designer. Cris lives with his wife, Michelle, and two cats in St. Louis, Missouri.     Ways to connect with Cris:   Website: soQuiet.org On all major social sites [Facebook, Instagram, TikTok, etc.] under the username: soquietorg   About the Host:   Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog.   Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children's Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association's 2012 Hero Dog Awards.   https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/   accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/   https://www.facebook.com/accessibe/       Thanks for listening!   Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below!   Subscribe to the podcast   If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can subscribe in your favorite podcast app. You can also support our podcast through our tip jar https://tips.pinecast.com/jar/unstoppable-mindset .   Leave us an Apple Podcasts review   Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts.       Transcription Notes:   Michael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us.   Michael Hingson ** 01:35 We appreciate it. Today we are going to have the opportunity to chat with Cris Edwards and Cris, among other things, has formed a nonprofit called so quiet. And I think there's a fascinating story behind that. And basically he deals with a lot of people who happen to have something called misophonia, which I'm not overly familiar with, and I'll bet most of you aren't, but Cris, clearly, because he found it so quiet, is an expert. And so there you are, Cris. Now you're stuck with it. Well, I want to know now. There you go, Cris. Cris is in St Louis, Missouri. We're out here in California, so we're little ways apart. But isn't science a wonderful thing? But Chris, I want to welcome you to unstoppable mindset. I really appreciate you being here, and we're looking forward to having a great chat. Thank you so much, Michael, it's a pleasure to be here. I met Cris through Sheldon Lewis at accessibe. Now you all have heard of Sheldon before. He's nonprofit partner manager at accessibe, and worked with a lot of organizations like Cris' and he said, Cris, you ought to go on this here podcast. And Chris, I guess, decided that we were probably worth going on. So here we are. Well, why don't we start Chris, why don't you tell us a little bit about kind of the early Chris growing up and some of that stuff.   Cris Edwards ** 02:59 Absolutely. Thank you. Well, I just turned 50 last week, so I don't feel like I'm 50, but yeah, I was born in 1974 I grew up in San Antonio, Texas, and, you know, I A lot of times we can connect the dots looking backwards, but at the time, in the 70s and the 80s, there really wasn't as much awareness and cognizance and attention paid to things like neurodiversity and invisible disabilities and different disorders and things. There was a whole different social viewpoint to that. But yeah, growing up, I always had noticed a few things I felt a little different from other people, but I did well. As far as the classes, I was capable of doing everything quite well, but was always distracted, and oftentimes found myself responding to things in a way that was different than the way other people responded to the sensory input around them. So we'll get more into how I realized that that is a thing later, but managed to go through school.   Michael Hingson ** 04:10 What's that? Is that sort of like ADHD? Well, that's a good point.   Cris Edwards ** 04:14 I actually do have ADHD, but that is that is a separate disorder from misophonia. Yeah. What's interesting? Thank you for asking that misophonia often co occurs with other conditions like that, other mental health conditions like ADHD, OCD. There's not one of those that sticks out. Misophonia is considered a separate unique condition disorder. It can occur on its own, but we know through research that it's it commonly co occurs with other things. So as I got older,   Michael Hingson ** 04:43 what's that I say? Anyway, go ahead. Anyway. Yeah. So   Cris Edwards ** 04:48 I actually, you know, I got through school, actually ended up going to college and went to grad school. I studied theater and got a master's of fine arts and directing. But where'd you go? Well, for undergraduate school, I. Went to a little University called Tarleton State University. It's about an hour west of Fort Worth Texas. It's actually an agricultural college that happened to have a theater department that was pretty good. And then I went to Texas Tech out in the desert of Lubbock for grad school. But I had always, you know, early on, I can remember as far back as fourth grade, or maybe even earlier than that. Nobody has any record of this. We're just going off of my my flawed memory. I remember that the sensory input I got around me, I felt like I responded to differently than other people. For example, if I was in a class, I can remember trying to listen to a teacher teach, or trying to take a test, and if there were particular things going on in the classroom, I could not focus on the lesson, and I could not focus on the test or whatever, because I was so distracted, like by particular motions or particular sounds. And I learned later on, much later in my adult life that they had created a term for this. It wasn't just that I was particular about sounds, that it's an actual disorder called misophonia. And so when I found out the word probably around 2007 I found out that this particular term was created in 2001 so nobody had any concept of of this existence while I was in school. But in general, misophonia is a largely auditory but in fact, multi sensory aversion disorder. If you ever hear of somebody who says something like, I can't if you don't stop smacking your chewing gum, I'm gonna have to leave like it makes me anxious and frustrated more than is normal. Nobody likes the sound of smacking gum, but if it gets to a point where you literally cannot be around that sound, and it gives you this very accentuated irritation, frustration, like a need to just get away from that sound in a way that isn't normal. That's that's kind of a hallmark of misophonia. Misophonia can also have a visual element. So seeing somebody doing something, like, if I see somebody chewing gum, but I can't hear them, that actually brings about that same reaction. And it's not a volunteer, it's not a voluntary reaction. There's also a similar kind of sibling disorder called miso Kinesia, and it is when people have a similar response, again, an involuntary physiological response to visual motions. So if I was in class looking back and somebody was shaking their feet or twirling their hair, which are very normal things for people to do when they're anxious. Taking a test, I couldn't concentrate that motion, just my brain focuses on that motion immediately, and I can't, I literally cannot focus on anything else, and it makes me very upset. So that's that's kind of a misophonia in a nutshell. You know, I if I was in a class and somebody had a bag of chips, the crinkling plastic and the sound of somebody eating chips would would affect me in a way that is very abnormal. So that was misophonia. And when I found out that this word existed, it explained a lot of the issues that I had growing up. You know, I know that that those my inability to to participate fully in classes affected my grades and so forth, and so since then, kind of during the pandemic, when everything was shut down. I had been working in the theater industry here in St Louis, and there was no theater happening for a couple of years. We didn't know for how long, so I decided to do something that was different than I started this organization to help people understand this really difficult to understand, sensory disorder, and there's been a lot of research happening on it, we know that it's actually very prevalent in society. There's been a number of prevalent studies that show that misophonia is actually quite common. As many as one in five people have the symptoms, and roughly about 5% of the population has it to a degree to where it impacts their life, to it from a moderate to severe amount. And so it can be disabling. I've worked with people who isolate themselves. And, you know, there's sounds and and visual things in the world that they they try to avoid, and and we end up avoiding things as a way of coping becomes very isolating. So we've worked with people who, even though they live in the same house as a parent, that maybe is activates that for them, they don't talk to their to their family, because it's so uncomfortable the sound of a person's voice. Or the way that they move is so uncomfortable that they stay in their room and and just text their family that's in the same house, it can be very isolating and frustrating. So I kind of went on a bunch of different tangents there answering your question, but hopefully that makes some sense, and I'm happy to explain any of it more. So   Michael Hingson ** 10:17 what did you do as you were growing up and so on, to to deal with. I mean, you obviously did something that allowed you to be successful at going to school, whether your grades were affected or or not. You still did make it through and all that. What did you do to to deal with all of it? That's a great question of understanding yet, of what it really was to have misophonia. Fantastic   Cris Edwards ** 10:40 question. Yeah, looking back, there were things that I would try to do, but I didn't have the awareness and I didn't have the words to explain to other people what I was dealing with. Because if I just tell people, if they don't know what it is, I can't the sound of the crinkling chip bag is driving me so crazy, it sounds crazy before we knew what it was, but, you know, a lot of it was just suffering and silence. I know it affected my mental health. It's sort of like I could try to compare it to if you're having an anxiety attack or even a panic attack, but you try to hide it, and that, you know an anxiety attack or something is not something you can control. They just come on sometimes. And if you were to try to hide that and and quell it so that people don't notice what you're going through, that's a little like what it's like to sort of suffer in silence and act like everything is normal, when internally, I'm just like wanting to leave the situation, because it's such an uncomfortable feeling being around totally normal sounds that are not a threat in any way.   Michael Hingson ** 11:52 So you kind of just did suffer in silence. And yeah, I guess the best thing to say is coped, if you will, coped,   Cris Edwards ** 11:59 and I would do things improvisationally to try to help. Looking back, I probably could have, if I'd thought about it, carried foam earplugs with me, which I do now, and worn those in class to kind of filter out some sounds. But I was talking to some other people recently who have misophonia in one of our peer support groups. And I would do little things like I would try to if you could rest your elbows on on your school desk, and put your hand your put your chin in your the palm of your hands together, you can kind of secretly put your fingers in your ears in that pose, but look like you're still paying attention. Yeah. So I would do things like that to where it looks like I'm still participating, but I'm actually blocking out some of the sound by secretly putting my fingers in my ears to get to the class and just little things like that I would do to try to get by. But   Michael Hingson ** 12:53 as you matured and got older and so on, did any of the symptoms mitigate or go away, or is it still as prevalent for you as it ever was? That's   Cris Edwards ** 13:04 a great question. My own experience has been a little bit of both. We don't have any research. We just have anecdotal stories on whether misophonia gets better with age or gets worse with age or not any different and people tell you different things. I think mine's been a little bit of both, in that there were things that didn't that used to not activate that misophonic reaction, that that anxiety and frustration and and panic that it brings about that do now. So for one example, is not everybody. It has that misophonic reaction activated by Pet Sounds. And that was never a problem for me until maybe about 10 years ago, where some noises that animals make would bring about that reaction. For example, we were talking about our cats right at the before we started recording today, and one of my cats is what I call a loud bather. You know, when she's bathing herself, the that very accentuated licking sound causes that, that involuntary reaction. So I, I have to kind of put her in the other room and she doesn't understand it. But so that's something that I have acquired. I've, actually acquired new we call them triggers. I try to avoid calling them triggers, because I think that term is kind of overused, so it doesn't even have any meaning anymore, but, but at the same time, you know, with with age and with introspection, I've learned coping skills. I've learned to deal with this. It is a part of my life, just like anybody with any kind of disability does their best to to accept some of the things that are going to be more difficult or different for us, and work on coping with the things that we can and changing the things we can through advocacy or accommodations or whatever. And so in a way, I've gotten better at dealing with it. I. Communicate about it very much more effectively now that I know the term for this thing, and you can Google it, and there is a definition, and there is research on it which didn't exist at all when I was a child, so I've gotten better at coping with it, even though I think my actual experience of it maybe has gotten a little bit worse. So who knows.   Michael Hingson ** 15:21 Yeah, it's yeah, it's something that only time is going to really give you the opportunity to do exactly how it goes and so on. But what did you do after college? So what did college lead you to?   Cris Edwards ** 15:34 Well, that's a great question. I was always active in the theater, but the theater industry is kind of difficult. It's a lot of with a normal job, typically you have some job security, so maybe you work there and you know that next month you'll still have your job unless things go wrong in theater. A lot of times you're hired on by production. So you might work for a month or two on a particular production of a particular play, and then when that's done, you're back to looking for work again. And so for for job security, I sort of went, after grad school, into the tech industry, and so I worked for a number of small tech startups in the early 2000s I worked at Apple for a while and did kind of a mishmash of things that had some benefits and some job security that the theater world didn't have, and and I worked in the theater more as kind of a after school extracurricular kind of capacity. So, yeah, it looking back, I did that, but it was still a struggle. I didn't know the word for this thing, and I knew that either other people were much better at dealing with being bothered by these sounds, or other people were not as bothered by sounds and and visual stimuli as I was. And so the 20 years ago, the idea of an open office. Was a big thing in startups, you know, you have just a big open office where everybody works, and that is a nightmare for people with misophonia and miso keynesia. And so I just struggled. It was just suffering in silence, like I said, doing my best to block out sounds when I needed or put up Visual barriers in the offices I worked in to to block out visual movements that might be very distracting and and uncomfortable, but I probably around 2007 I found out that there's a word for this thing and and slowly, over the years, I realized that it's a it's not just a made up term that somebody on the internet came up with. It's an actual medical term that was invented by audiologists and and there was a research beginning on it roughly 10 years ago. So yeah, when I look back, I just kind of had a mishmash of things that I have done professionally since then. And I started this organization because I I wanted people to know that they can ask for accommodations, that they can talk about this with the confidence that it is a real thing, but it is supported by science, and there are ways of getting through life with it. There's actually an entire department at Duke University dedicated to studying misophonia as the Duke center for misophonia and emotion regulation. So all those kind of things help validate that this is a just a strange, sensory based disorder. Not to get too long winded about it, at the beginning, I had mentioned that we could oftentimes connect the dots looking backwards. And, you know, I'm pretty open about sort of my experiences with things, just because I want other people to realize that they're not alone and that there are certain pitfalls that can happen and and it's not unusual. So when I look back, you know, in in my college years, I found that, as a lot of college students do, alcohol was something that helped me be more social with misophonia and my ADD and I'm kind of an introvert anyway, even though I can play an extrovert on TV, I was, I was, I was kind of a hermit in college and and theater is a very social right industry, and so people bugged me a lot about it, and I found that alcohol helped calm my senses, that I could be around other people and be in misophonically triggering situations, which I didn't know about at the time, and be more social. And so over the years, the alcohol became a crutch, and it became a much bigger problem than than my misophonia was, and I didn't realize it at the time, so that sort of took over my life, and I got sober about seven years ago, and really had to assess how I can get by in life with my sensory issues and needs without numbing my senses and causing a lot of problems in my life. If that that caused so I say that just so people know, because I hear other people who sort of self medicate, it's a understandable thing to do, but it really had a huge impact on my life. And I think there are better ways of dealing with invisible conditions than self medicating. So I just want people to know that that is also a part of my story that happened over the years, and I don't think it's unusual.   Michael Hingson ** 20:28 Well, tell me a little bit more about, well, about all of that, in terms of dealing with it and so on, and what, what you've evolved into doing.   Cris Edwards ** 20:37 It's a great question. So I, I guess since getting sober is a lot of things have happened. The pandemic happened, and, you know, I think I've, I've thrived. A lot of people find it interesting to know that, for example, I got married, and I know that's not really a big deal. That's a very common thing that a lot of people do, but it's important for a big deal for you. Well, it's a big deal for me, sure, but when we work with parents who have children with misophonia and other conditions, they really worry about their children, like, what kind of future will they have? You know, are they going to struggle with finding employment and finding friends and being in relationships and and doing typical things? And so when I they find out not that I was trying to be encouraging everything, but when they find out that I actually did get through grad school and got a master's degree, and I have gotten married with this misophonia, they're relieved to hear that it's possible to do fairly typical things. It may not be as easy. So yeah, that's that's kind of what I've done since getting so bright. I finally got married at the age of 45 we moved to St Louis, where my wife has a very good job in the library system, and started a very successful nonprofit, and have remained very active in the recovery community. All of these things are things that I've worked hard to do and and I wouldn't have been able to do if I was still sort of stuck in my self pity, self misery, self medicating phase of my life. I'm glad that's over with, but yeah, I feel like I'm playing catch up on life the last few years. But   Michael Hingson ** 22:23 on the other hand, you're doing that, and part of it is, and is that you're, you've, you've discovered a lot about you, and yeah, you you had alcohol and so on, but you've gotten over that, and you've made some mental commitments that certainly have to be helping with you being able to address the issue of misophonia?   Cris Edwards ** 22:42 Yeah, that's true. I would, I would think that pretty much anybody who has any kind of disorder or condition or disease that impacts your life, especially if it's disabling in any way you know, or affects your ability to do typical things in a typical way that that your average person would. You know, you have to do a lot of introspection. You have to be really creative with coping in life and coming up with unique solutions to get by. And that requires a certain amount of resourcefulness and and introspection and and intelligence. And so, you know, I I've been very fortunate to meet some wonderful people with misophonia. Through the misophonia community that is actually huge. People are finding out that they are a part of it, and they didn't even know it every day, and they're contacting us. And just wonderful people who are bright and talented, and I'm glad to be a part of this unique community that we find ourselves in. I think it's a big part of it too, just the validation that we get and the ability to share our experiences and our frustrations and successes and stuff. Yeah, yeah.   Michael Hingson ** 23:56 Well, introspection is very important. Not nearly enough. Do we use it? And do we teach children in each other to use the whole concept of introspection to deal with things I wrote a book was published in August of 2024 called Live like a guide dog, true stories from a blind man and his dogs about being brave, overcoming adversity and walking in faith, and one of the main things that we talked about right from the beginning of the book, it's the book is all about helping people learn to control fear, rather than letting fear blind you or overwhelm you when something unexpected happens. And as you may know about, my story, having been in the World Trade Center and confronted by the horrific things that happened on September 11, I didn't negatively react, because I knew what to do. I had developed, although I didn't realize it at the time, a mindset, because I had focused on learning what to do in the case of an emergency. I knew what the evacuation procedures were. I knew why they were, what they were, and where to go, and the various options and so on. So I was. Prepared, although never expected to have to use it, but a lot of that also came from thinking about myself and how I would react in different situations, and not becoming paranoid over but rather really stopping and thinking at night when I had time, well, how would you react if this happened in this way? Or how would you react? Or what will you do with all the knowledge that you've gained? And I developed a mindset that said, You know what to do in the case of an emergency, and when the emergency occurred, the mindset kicked in. And again, a lot of that has to do with introspection. I think we don't spend nearly enough time in our own minds, thinking about ourselves and dealing with the things that that we face. One of the lessons that I've been teaching people for a while, and that comes out of the World Trade Center, is, don't worry about what you can't control. Focus on what you can and the rest will take care of itself. And there's so much that we worry about we don't have any control over, but we still worry about it, and all that does is engender more fear in our lives and makes us more uncomfortable, whereas if we would just worry about the things that we truly can worry about and not worry about the rest of it, which we can learn to do, we're much better for it. And in your case, it's the same sort of thing. You've got misophonia, okay? But at the same time, look at what you've done and how far you've come in terms of just mentally developing and preparing yourself because of the whole issue with alcohol and everything else, yeah, and you have grown, and that has to help in how you deal with misophonia.   Cris Edwards ** 26:47 Absolutely you said it exceptionally well. And you know, anecdotally, sometimes people say that when you develop, you know, substance use problem of any kind, you kind of stop growing spiritually and growing emotionally, and I think that was true for me. So when I got sober around the age of 42 I had to catch up with being an adult. And one of those was introspection, like you said, it's, it's a lifelong thing. And I think Aristotle, or one of those, said that the, you know, the self examines life is its own reward. And through recovery programs, I'm very active in AA and and they focus on why, why you do the things you do. What is your what is your thinking problem that turned into a drinking problem? And that's just pure introspection, like you said. And I'm grateful to to have learned those skills of picking apart, why I do things, and how can I get through life better in a in a more earnest and and kind and forgiving way than I had been. And, yeah, I interestingly, I mean, you talked about faith and that sort of thing. I don't come from a particularly religious background. My family was fairly non religious, which was unusual back in the 70s in the south in Texas. So I didn't really have that background. But, you know, I even today, I consider myself fairly agnostic, but there's not a day that goes by that I don't fall back on the advice of the Serenity Prayer, which I didn't learn until I got into AA. What wonderful advice. I sort of came to that same conclusion through the Stoic philosophers, but they're teaching the same universal truth, which is exactly what you said. If there's something that I'm really stressed about and having a problem with, if I can ask myself, Do I have any control over the outcome of this, and if the answer is no, I need to work on forgetting it. I'm just my worrying isn't solving any problems. It's just making me suffer, but I can't do anything about it, and that's a hard thing to do, and it takes daily vigilance, but you're absolutely correct. And   Michael Hingson ** 28:56 the other part of it is, even if the answer is no, introspection helps you. Then think about, well, why have I been worrying about it? Then, I mean, maybe something else that's pertinent that made you start to worry about it 100% and it might very well be that there you'll discover there is something about which you you do have some control regarding whatever it is, but if you don't take the time and well, it's not just taking the time to be introspective, it's also making the life choice to say, I'm going to think about this and I'm going to find the solution that works for me, and make that commitment. And that's got to be part of what you do, because it isn't just, oh, I'm going to think about this. Well, that's not enough. You also do have to decide, I'm going to deal with it. I'm going to find out what is going on, and then I can move forward. And I will move forward   Cris Edwards ** 29:56 Absolutely, yeah. How you deal. If that powerlessness or inability to have any control is is you're right, the next step, and it's difficult. There's, there's so many things I I have no control over. Actually, most things in the universe I am powerless to influence. I can't change the weather. I can't move the planets any differently, you know, and so, not yet. Anyway, not yet, no. But same with situations. I mean, there's just some things that I that affect me that I don't really have the power to influence in any way. And so yeah, how you deal with that and not let let that fear, that worry, that angst, control your life, which it has done before for I think a lot of us, is a challenge.   Michael Hingson ** 30:37 Well, what made you finally decide to start so quiet and form an organization to deal with misophonia. I know you mentioned the pandemic, but started, What? What? What happened?   Cris Edwards ** 30:47 That's a great question. At the time, I could sort of see that there, I just had a hunch that misophonia was probably not the rare condition that it was considered and like, you know, six or seven years ago, it was thought to be a very rare disorder or a rare thing to experience, and I had a hunch that that wasn't the case. And I also saw that there was a lot of advocacy and awareness and support that needed to happen based off of the input I was receiving from other people with misophonia that nobody was doing there at the time, was one other nonprofit organization dedicated to the misophonia world, and I just wasn't really happy with what they were doing. And what they were doing was not much. They weren't really doing anything from the viewpoint of lived experience. Nobody on their board had misophonia. They were all sort of veteran clinicians, and they weren't doing all of the things that came to my mind as what needed to be done to spread awareness and to further research and on and on. And so I thought, well, I guess it's up to me, as Bob Dylan says, nobody else is doing it, so I have the opportunity to see if maybe it's something I can impact. And have been very fortunate to have some really notable wonderful people sign on early to our board and to sign on to volunteer and to help fund some of our our programs, like our student research grants, is are something that we we give out to graduate students who are interested in researching misophonia for a thesis project or a doctoral dissertation. We can give them some funding to undertake a small study. And we were fortunate enough to find some, some families who had a child with misophonia who wanted to fund that kind of research program. So we've been fortunate. We've We've done some very successful things. Not, not to pat myself on the back too much, because we've had a lot of help, but, but we, based on my experiences in the recovery community, I became a certified peer specialist, which is a something that the state of Missouri certifies after some training. And we started the first peer support program, comprehensive peer support program for misophonia in the world. And so we're training people to be facilitators of peer support groups for misophonia, and just a lot of things that didn't exist that I thought would be nice to have happen, or other people told me that they would like to see as resources for people with misophonia. And so we just try to do the things that people say they want that don't exist.   Michael Hingson ** 33:32 Well, you got to start somewhere. Needless to say, of course, that's right. And and make it work. What's a really great success story that you can point to with so client that's that's really made a difference?   Cris Edwards ** 33:47 Oh, that's a great question. We've got a kind of a weird mishmash of things that we do. We've sort of focused more on the research aspect of it, not only with our research grants, which have been, I think we've given out probably 10 of those in the last few years. But we also have some other research and support based things we just launched, actually kind of relaunched a project that we took on a couple of years ago, where it's just, it's misophoniaproviders.com it's a free website, an online directory of clinicians like psychologists or audiologists who know what misophonia is and and know how to work with clients who have misophonia. And we're working on training for clinicians so that they can get up to speed on it. There aren't really any proven treatments yet for misophonia, but there are ways of working with people who have misophonia, so that you can help them cope and get by and and maybe even test for other conditions and weed those out. And so there's ways of doing that. So we just, we launched a free online directory for for such clinicians in the last month, and we're working on the training for that. And that's really Phil. A huge niche. We decided to focus on that because misophonia is not well known, and we just heard so many people contacting us saying, I went to my doctor or I went to my counselor and said, Hey, I think I have this misophonia. And the counselor or doctor had no idea what it was. They'd never heard of it. They don't know how to work with it. They don't know what to do. And we heard that so much that we just realized that that is a huge bottleneck. If we take the prevalence studies I mentioned at the beginning of this episode, that 5% of the population roughly has misophonia to a moderate or advanced impacting what experience like they have in a way that impacts their life in some way, either they're avoiding situations, or it's affecting their job or their schooling or their relationships. That's still millions of Americans. And if millions of Americans are experiencing this, even at 5% and I can think of maybe 30 clinicians in the entire country that I would feel confident enough telling somebody to go to. That's a huge problem, if only 30 people are handling millions of of of sufferers or people who experience it. So we want to try to tackle that and really make it so that that we're training clinicians on misophonia. It is hard to understand. It's a strange thing for people to get their head wrapped around all of its idiosyncrasies, but I would like to say, hopefully in a year, that there's at least one or two clinicians in every state of the US that can see misophonic clients. Because currently that's not the case. So I think that that seems to be going really well. It's a huge project, but it's, it's really just to try to solve that problem that we hear so much about, and it is heartbreaking. If, if you talk to your trusted clinician about something and you know more about it than they do, that's kind of frustrating.   Michael Hingson ** 36:58 Well, one of the things that that I'm sort of curious about in our modern world there where things continue to get better and so on. Are we seeing yet, any kind of advances, medically speaking and scientifically speaking, to help misophonia, or is it still too new?   Cris Edwards ** 37:15 That's a great question. Yeah, we've been really fortunate. About four years ago, there was a family in the Chicago area that has a daughter with misophonia, and they started what's called the misophonia Research Fund. This is a private fund, family, family funded fund that has provided the money necessary for some very great studies. The the number of studies on misophonia in the last, let's say, three to four years has really ramped up. Researchers find it fascinating because it's so strange, like misophonia doesn't really align with any known conditions or disorders that we understand better, like OCD or ADHD, not that we understand those fully, but it's just it's an anomaly, and people want to learn about it because it's so strange, as far from a medical standpoint, I mean, and fascinating. And so there's been a lot of research on it. And of course, people are struggling every day with it, and would really like to see some kind of treatment in the near future. So there's a number of universities and labs around the world who have been studying this diligently, like at Duke at Baylor Oxford University has has some going on, among others. And yeah, they're coming at this from a variety of aspects. Some of the more recent work from Duke and from Oxford, aren't really, let's say, aren't really treating misophonia itself, but are working on using known practices to help cope with it better, so things like cognitive behavioral therapy, which is a well established psychological practice which covers a lot of different methods, has been shown to be fairly effective at helping people cope better and handle those triggering situations better in life. So there's some of that. Now we have some studies on the brain activity of people with misophonia and and there's about three or four of them that show that the way a person's brain responds with misophonia is different than how somebody who doesn't have it would respond to the same sounds. And so researchers are looking at those different brain areas that are activated in somebody with misophonia when they hear a particular sound and seeing if there's anything that we know of that can affect that. So, long story short, there's a few studies happening now on using existing medications that are on the market to maybe treat misophonia. We don't have the results of those that may not prove to be successful at all, but I. There's one in New York at Mount Sinai testing a very well established medication named called propranolol. That's a beta blocker that's been around for years, that's very affordable. There's some speculation that that might help affect the parts of the brain that misophonia uses, and again, I feel like I'm maybe I've had too much coffee. I feel like I'm being long winded. So I apologize. But as a third part of that, we're also seeing some interest on the technological front for assistive devices. One of the things that I think is really fascinating that has just started is there's a a lab, I think it's an academic lab in Washington state that developed an AI algorithm that is a context aware noise canceling algorithm. I was wondering about that. Yeah, so a lot of people with misophonia now use off the shelf noise canceling headphones. And noise canceling headphones aren't smart. They just knock out a particular frequency and that's it. This is a whole different ball game and and I, the people who have seen the prototypes of it, call it miraculous for misophonia. And the AI wasn't even developed for misophonia. It was developed for audio editing, a completely different use, but if you train this particular noise canceling AI on a type of sound, it learns what that type of sound is, and it can completely remove that sound in a noise canceling function, but not affect any other sounds. So for example, if somebody with misophonia was triggered by bird singing, that's not a real common one, but that, I'll use that as an example. It's a great example, though, yeah, you can train it with the types of bird noise that a particular find, a person finds aversive, and the AI learns what those are, and within the context of its input, can just completely remove those sounds, not based on frequency, but the actual sound itself, actual sound, yeah, and not affect the voices, not affect any other ambient noises at all. And if it works, as people say, that's going to be a wonderful assistive device for people to misophonia. It could be life changing.   Michael Hingson ** 42:07 That'll be a major game changer, because that deals with the basic sound absolutely and you could be in a classroom and not worry about the kids chewing gum   Cris Edwards ** 42:15 precisely. Yep, be cool. So there's a lot of work on, a lot of interest in treatments and stuff, yeah,   Michael Hingson ** 42:22 well, and that's why I asked. It just seems like it would make sense, and I'm glad there's enough of an awareness about it now that people are, in fact, doing more research regarding it. Yeah, I'm assuming that misophonia would be considered a disability,   Cris Edwards ** 42:41 absolutely. Yeah. One of the things that we started off that there was a big, important part of so quiet early days that nobody was really tackling was that misophonia can be a disability. It affected my life. It still affects my life every day in in all kinds of ways which I can go into. But you know, not for everybody. Some people have symptoms of it, and it's not not affecting their life. They're not avoiding things, or it's not impacting their relationships or their their life activities. But when I looked at the, say, the ADA definition of what a disability is. It's pretty broad, and I say what you will about the ADA, it's got plenty of things to criticize, but I think the definition that it uses to determine what is a disability is is pretty open, yeah. And so I appreciate that, and my experience with misophonia absolutely fits that. Misophonia has affected my social life, my schooling, my work. I've quit jobs because my misophonia. When I look back, there's been a couple of jobs that I just walked out of because something was so disturbing to me and my sensory aversion that I've actually left jobs, which I'm not encouraging anybody do that, but you know, it's impacted my life a lot,   Michael Hingson ** 44:01 but you know a lot more now too, I do, yeah, and so that I would think can help make it more possible for you not to quit a job, or that you can change the circumstances so you can perform a job. Yeah,   Cris Edwards ** 44:16 it's very I'm glad you said that. It's very validating to even have the most basic of affirming information. So the fact that it was given a name, this amorphous thing that was hard to explain and hard to describe, now has a has a name, I can tell people Google misophonia, and that will explain things very well. We have a consensus definition. A bunch of researchers about three years ago published in an academic journal just sort of a consensus definition on what we mean when we say misophonia, what this thing is as we understand it. So that helps probably one of our most low tech but popular programs or initiatives was so quiet. Is our free information cards, and these are just business cards, really. They're double sided business cards that say I have misophonia. Here's a brief description of what it is. You're not doing anything wrong, but that that sound is going to be very disturbing to me while I'm around. Would you mind not doing that? Like yeah, thank you for your help. And we printed those because a misophonic reaction is so physiologically uncomfortable, a lot of people feel very irate or frustrated or uncomfortable, or it's impossible to communicate about it in a way that's kind and and helpful when you're having that reaction. And so the cards we send for free to people all over the world. We've sent out 1000s and 1000s of these. The cards do the talking for you when you can't, and you can hand them out to people and help them learn about it. And those have been incredibly popular. But just having tools like that, I use the cards sometimes. If I'm talking to somebody new about it, a stranger or somebody at a that I've never met at a meeting or whatever, I can say, hey, you know, when you get home, you can look more, look up more about this particular thing. But here's what it's called. This is what I experience, and that's why I have the no chewing gum rule at this meeting. You know? But the cards are low tech. They're cheap, but hugely popular. We love sending them out. We sent them to every continent except Antarctica, and just, it's been very helpful in communicating about   Michael Hingson ** 46:23 this. Well, you'll really have arrived when you get to Antarctica. Then, you   Cris Edwards ** 46:28 know, we've reached out to people in Antarctica to see if they know anyone with misophonia. So we're working on that. Yeah,   Michael Hingson ** 46:33 so low population continent, but still, right? But, you know, it's, it is still definitely an issue that needs to be addressed in so many ways, and it's so exciting that you're doing it. And I go back to the thing that you said earlier about the AI solution. You know, we keep hearing about AI and all the horrible things about it, but the reality is, it is like anything else. It's how we use it, and I think that's a very intriguing process that you're using AI to to deal with sound somebody once told me about the whole issue with noise canceling, and it was some time ago, so it's evolved a lot, but they actually had a house, and they had noise canceling processes around the house. So even in the city, you didn't hear all the city sounds until you got outside and away from the noise canceling And now, of course, it's a whole lot different, because you can do so much more about what you want to filter out.   Cris Edwards ** 47:40 Yeah, yeah, that's absolutely true. And even very low tech solutions, I realized early on, and looking back, I can again, I can put the pieces together, but I like having a little bit of white noise around. So I have box fans around the house, and I leave the exhaust fan in the bathroom in the kitchen on, because it helps muffle things. And that little bit of white noise I find very helpful in in a low tech   Michael Hingson ** 48:07 way, it's not ocean sounds. I   Cris Edwards ** 48:11 actually like ocean sounds. Now, the interesting thing about misophonia is that every person with misophonia has kind of a different involuntary set of sounds that affect them. There's some ones that are fairly common, like eating sounds or poop slurping or whatever, very common. But not everybody with misophonia is triggered by those. And so I actually love the sound of Yeah, ocean waves, cats purring. I find those very relaxing. But not everybody does. Some people hate white noise. I whatever.   Michael Hingson ** 48:43 I like silence, and so, yeah, I like the sound of the ocean and so on. But I also enjoy just sometimes not having anything on. And that's that's just me. But I believe when you're going back to being introspective, when you're really thinking and looking at things internally. It's nice to just be quiet and not have other things that distract you, because then you can really focus on what you need to do and listen to your own inner voice that you might not hear otherwise, absolutely.   Cris Edwards ** 49:16 And one other thing is kind of hard to understand about misophonia is that complete silence is not always preferable. If you're in a completely quiet room, then every little noise is more noticeable, and that could be our problem. So we often joke about there's sort of a middle, middle ground of noise. If we go to a restaurant, you know, finding where the optimal place to sit in a restaurant where you're not likely to be to be a heavier misophonia activated is sort of a mathematical challenge, but a medium busy restaurant is ideal. It's too quiet, then you can hear everybody eating. If it's too noisy, it's overwhelming. There's kind of a general we look for medium busy restaurants as the ideal, because the noise and Chatter is just vague enough to cover up sounds and. That be, I don't know, it's kind of funny   Michael Hingson ** 50:02 today i i don't seem to have any luck at finding very quiet restaurants any rush.   Cris Edwards ** 50:07 That's true. But, um, you know, it's, as everybody who probably listens to your your program knows, it takes a lot of just reconfiguring plans all the time. It's a lot of improvising on the fly to suit our needs. And it's very common for me to go grocery shopping, and then if there's somebody popping their gum that you can hear all over the store, I have to leave, and I'll just have to come back later and finish my grocery shopping. It's just constantly rerouting and re orchestrating what I have planned to fit around the world, and the input that it provides is it's kind of a challenge. I   Michael Hingson ** 50:44 guess I'm weird. I've never really learned to pop gum. I can chew it. I've never been a major gum chewer, but I've never really learned to pop it so I don't make noise like other people did. And in fact, in reality, I didn't learn to blow bubbles with bubble gum until, gosh, it must have been like about 2004 well, 2005 or 2006 I just never learned, but I finally did learn, and that's interesting,   Cris Edwards ** 51:11 yeah, sometimes, like I I'll run into people in public, and I wonder if they have misophonia, whether they realize it or not. This is a strange anecdote, but when my wife were moving from we were moving from Denver to St Louis, and we stopped at a Denny's in the in the middle of Kansas somewhere, and we sat next to this older gentleman who was sitting by himself, and he didn't make any noise when he ate the silver word, never touched the plate. He chewed quietly. He didn't make a single noise. And we both noticed that, and we thought, I wonder if he has misophonia, and he's accommodating for himself, whether he realizes that there's a word for it, and it's a thing like he's being very conscientiously trying not to make any noise when he's eating. It's fascinating   Michael Hingson ** 51:56 for me. I just never learned it. I mean, so I don't think it was an avoidance issue. I just never learned how to do it. And as I say, I finally learned how to blow bubble gum because somebody finally described the process in a way that I was able to emulate it and blow bubbles. But no one had ever described it to be and so having not seen other people do it and see how they do it, it was it was fun. I'm glad I can now blow bubbles, but, yeah,   Cris Edwards ** 52:23 it's that's a that's a skill. One other thing that's interesting that you kind of reminded me of is when we have conditions or disorders like misophonia or miso Kinesia or other sensory aversion or sensory sensitivities, we can oftentimes end up in kind of a accommodations stalemate, where we have conflicting needs. So a lot of people who have, say anxiety disorders or PTSD or anxiety, and a lot of times people with autism, they like to make noises and and do what they call stimming, which is kind of self soothing, repetitive movements, popping bubble wrap is very soothing to them. But for somebody with misophonia like those are the things that we want to avoid. And so sometimes what might make one person comfortable and that they need to be doing for their own serenity is going to be very aversive to people with sensory disorders. And so in a classroom or work environment, sometimes we get these conflicts of needs. It's tough to navigate,   Michael Hingson ** 53:30 yeah, how do you how do you deal with that? I mean, I guess you have the cards that you mentioned. You know, in general, I guess that's kind of the sort of thing that you have to do is to recognize you have to deal with people who aren't necessarily sensitive to what you're wanting to deal with. Yeah,   Cris Edwards ** 53:48 in some of those instances, one of the things we do a lot is right writing advocacy letters from a lived experience standpoint on what misophonia is to help people get accommodations if they need them, and they're usually very simple, no cost or low cost things that people can can ask for at their work or in their their school. But a lot of times, you know that that gives us an impetus to ask for either remote learning, maybe for somebody with misophonia, that's a lot more common now, having a private workspace that's honestly an office, but is is quieter and and that way both people can can have what they need. And yeah, we try to come up with creative solutions to help everybody with accommodations. What   Michael Hingson ** 54:34 would you tell someone today that you encounter who kind of feels helpless and hopeless because they have a condition like misophonia?   Cris Edwards ** 54:41 That's a great question. I think one of the big reasons I started a nonprofit was strictly to help with that people with misophonia, or really, you know, any kind of similar condition or disorder can could kind of start feeling hopeless. Misophonia can be very isolating, like. I said, people avoid interacting with the public or their families or the world at large as a way of of coping. And it can seem like the world in its current state, is not made for people like us. The world is a noisy place. Yeah, we're we're in a society. And so it can, it can start. You can kind of get down in a in a hopelessness pit, as I call it, kind of a depression hole, thinking, well, am I cut out for the world? You know, what kind of job am I going to have? I have to work with other people. I have to go to school with other people. I actually like talking to other people. I just can't I sort of compare it sometimes to an allergy, so a person with, say, a peanut allergy might actually like peanuts. They just can't have them. And so I try to tell people that all hope is not lost, even though we don't have a proven treatment yet, we should in the future, things are getting better. We have a lot of things now that we didn't have when I was growing up, as far as information and support and a community that all understands this and those things can be wonderful. We have peer support meetings and just to hear, hear somebody say, you know, I've never met another person before today who had misophonia, and knowing that this thing that I have had such a hard time explaining to my family, that you all get it, you all know what it's like, and when nobody else in my life truly gets it, that's That's amazing. All hope is not lost. And one day at a time, we can kind of get through. And it's a challenge, as it is with any disability to get get through, hour by hour, but over over time. You know, I, I feel like my life is going well, even with my invisible disabilities or invisible disorders. Just takes a little extra work, a little more creativity, little more understanding from other people, so on, so forth. But   Michael Hingson ** 56:55 you synthesize that and you understand it, which is important. So you've, you've had that blessing, and I'm glad that you're able to pass that on to other people being being curious and nosy. As I mentioned earlier, we got introduced to Sheldon. How did you guys meet?   Cris Edwards ** 57:09 That's a great question. You know, I was for a completely unrelated reason. I was looking at business websites. I for our website, or so quiet website I wanted to put together terms and conditions. Now, geeky people know that pretty much any website you visit for a business organization, there's some page on their website that is the terms and conditions for using a website. Most people don't venture into those because they're just legalese, but they exist. So I was looking at some examples. What's that? But they exist. They exist. Yeah, for legal aficionados, but I was looking, I think you, if I remember correctly, and don't quote me on this, I think it was the Dr Bronner's soap page had this little accessibility button in the lower right corner of every page of their site. And I was like thinking, what is that? So I clicked on it, and I brought up this really cool, robust menu of accessibility options for visual impairments, ADHD, you know, helping you focus on things, just any kind of thing you can imagine, as far as ways that you can change a website to make it more accessible was on there, and that blew my mind. And of course, running a nonprofit with a very popular website that's based around particularly sensory disabilities, I had to reach out and and I found out that it was the access be plugin, it's very easy to install on our website. And so I reached out, and they put me in touch with Sheldon, who who helped us get on board and add it to our website, and has been really very helpful and a good advocate for people like us, and it's been working for you? Yeah, yeah. I'm I'm really delighted to have that on our website and be able to offer that to everybody who visits us.   Michael Hingson ** 59:01 Well, that's cool. I'm glad that it's working well and that it's helping people be able to interact more with the site. And you're right. It's got a lot of different profiles. And the neat thing about accessibe is it continues to grow and expand, and so much more than it used to be. And then we'll continue to do that, which is another example of AI. It's not kind of everything as perfectly as one would like, but there are other alternatives that accessibe has for websites that are more complex, but still, the fact that you're able to make it work, and it's enhancing your website that's as good as it gets. Yeah,   Cris Edwards ** 59:36 and I think, if I remember correctly again, I'm kind of new to accessibe, but I think part of the AI is that it generates image descriptions kind of magically, which blows my mind. Some are   Michael Hingson ** 59:47 more accurate than others, maybe so, but that's okay. But you know what? They're getting better all the time. That's the real issue. And so images that may not be described with. The AI technology and described well today might very well be much more accurately described in six months. That's the neat thing about accessibe. It is so scalable, it is and it makes it possible when, when any improvements are made to accessibe, it improves every site that uses   Cris Edwards ** 1:00:20 automatically. Cool, yeah, yeah. And I just, while we were talking, I think I'll reach out to Sheldon, because I just had an idea for a feature that I don't think is on there that I could recommend, and that is white noise and brown noise as an option, a little player. We added a brown noise player to our website, but if that was a part of the accessibility options to have kind of a white noise or, ah, I think I'll recommend that to Sheldon. We'll see what happens.   Michael Hingson ** 1:00:43 Make sense? See what happens. Yeah. Well, if people are speaking of reaching out, want to reach out to you and learn more about so quiet and so on. How do they do that? That's   Cris Edwards ** 1:00:52 a great question. You can visit our website. It's just so quiet.org. You can find us on pretty much every social media platform. We have the same handle for everyone. It's so quiet org. Or you can email me at hello at so quiet.org   Michael Hingson ** 1:01:08 There you go. Well, people will reach out. It is easy, likewise, and I think that's so cool. Well, I want to thank you for being here. This has been very informative and a lot of fun, and I've learned a lot, I love to say that if I'm not learning at least as much as anybody else who listens to the podcast, I'm not doing my job right. Yeah, I really enjoyed learning and really valued the time we got to spend. So you are always welcome to come back any old time you want, if you got other things to chat about. Have you written any books yet? No, to work. Get to work.   Cris Edwards ** 1:01:41 I'm thinking about that. You know, there's actually only been one book on misophonia published by a major publisher, in other words, that wasn't self published, and that came out last year by Dr Jane Gregory. She's a great collaborator of ours, but maybe I will write a book, but I'll tell you, Michael, it's it's been wonderful. I thank you so much for having me on your on your podcast and for doing what you do, it's been a delight to learn your story as well and learn about, you, know, your experiences and and we talked a little bit about philosophy and self reflection, and that's it's just been wonderful being on here. So thank you so   Michael Hingson ** 1:02:13 much. Well, this has been fun, and I hope that all of you listening out there have enjoyed this. I'd love to hear from you. Love to hear your thoughts. Love to hear what you like, maybe what you didn't, but I hope you liked it all you can reach me easily enough. It's Michael M, I C, H, A, E, L, H i at accessibe, A, C, C, E, S, S, I b, e.com, or go to our podcast page, which is w, w, w, dot Michael hingson.com/podcast, and Michael hingson is spelled M, I C, H, A, E, L, H, I N, G, S O n.com/podcast, and wherever you're watching or listening, please give us a five star rating. We love getting ratings, and we appreciate the high ratings that that you give us and then and any input that you have. And Chris for you and anyone out there who is encountering the podcast. If you know of anyone else who ought to be a guest, please let me know we are always looking for more people to come on uns

Dr. Jaelline Jaffe is one of the most experienced therapists working with people with misophonia, over on the west coast. Jaelline shares her journey from teaching to becoming a therapist specializing in misophonia. We talk about a ton of things, the importance of family support and school accommodations and we get into her own protocol for approaching misophonia that incorporate cognitive behavioral therapy and dialectical behavior therapy. We spend a lot of time highlighting the role of adverse childhood experiences and epigenetics in understanding misophonia, emphasizing the need for mental health professionals to be aware of these factors in treatment. We also talk about the Misophonia Association annual convention, for which she is a co-founder and board member. It's happening again this October 16th weekend in Phoenix and we talk about what it's all about and how you can learn more. See the link below. Also I wanna mention her new book for clinicians called “These Sounds are Driving Me Crazy!” Training for Mental Health Professionals in Treating Sound Sensitivity Disorders. It just came out and is available at sensitivetosound.com/training. Link again below.  Jaelline's new book “These Sounds are Driving Me Crazy!” Misophonia Association -----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Meagan is an actress based in San Diego. Meagan shares her personal journey with misophonia as a wife and mother of 3, including her experiences with therapy and self-regulation techniques. She discusses Image Transformational Therapy (ImTT) that has provided Meagan with significant relief from her symptoms from 10 to about a 2. We get into the neurological aspects of sound sensitivity, childhood experiences, the generational patterns of sound sensitivity, and the potential of neurodivergence as a superpower. And we also talk about the pilot TV show has been working on with a partner called Triggered which aims to show all the dimensions of misophonia in a television series. Meagan on InstagramTriggered on Instagram -----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

This week I'm talking to Alex from beautiful Victoria, British Columbia. Alex shares her lifelong journey with misophonia, which began at age 11 amid a turbulent home life. She opens up about how her sensitivity to sounds, especially during family meals, became tied to a need to escape overwhelming emotions. Through therapy, Alex discovered how these triggers were linked to deeper childhood trauma and learned to reframe her reactions with self-compassion. From feeling isolated and misunderstood to finding tools for healing, Alex's story is a powerful reflection on resilience, emotional awareness, and the path toward self-acceptance. -----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

You might have heard of misophonia an intense dislike of other people's noises, but you may not have heard of misokinesia, a diagnosable hatred of fidgeting. To talk about these two conditions a bit more we're joined by Dr Jane Gregory, Clinical Psychologist at Oxford University.

Kathryn runs an ecology non-profit in southern Oregon. She shares her journey with misophonia, particularly how it has impacted her life as a parent. She reflects on her childhood experiences with sound sensitivity, the lack of understanding from those around her, and how her relationship with her husband has provided a supportive environment. We talk about the impact of misophonia on her relationships, particularly with her daughter, and the strategies she employs to manage her sensitivities. Kathryn also explores therapeutic approaches, including psilocybin and acupuncture, and emphasizes the importance of understanding and support from family and friends. -----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Imbi is an author who came to my attention earlier this year when she published her novel “Kind Of, Sort Of, Maybe, But Probably Not”, which features a lead character who has misophonia. Imbi shares her experiences with misophonia, discussing how it affects her daily life, relationships, and creative pursuits. She emphasizes the importance of communication with loved ones about her sensitivities and how she manages to balance her writing and parenting responsibilities. The discussion also touches on the broader implications of neurodiversity and identity, and some of the unique challenges faced by those in the misophonia community.Please checkout her website imbineeme.com Guardian article: https://www.theguardian.com/books/2024/feb/19/ive-always-hated-the-sounds-of-chewing-slurping-and-sniffling-but-now-i-know-im-not-aloneRefinery29 (piece about dating with misophonia)https://www.refinery29.com/en-au/dating-with-misophonia-crunching-noisesKind of, Sort of, Maybe, But Probably Nothttps://www.penguin.com.au/books/kind-of-sort-of-maybe-but-probably-not-9781761341069-----Web: https://misophoniapodcast.comBe a guest! https://misophoniapodcast.com/be-a-guestSupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

In this experimental episode, we're talking about a new AI research platform I am developing that blends scientific literature, lived experience on the podcast, and questions and comments from the community. You can learn more about the details and some research proposals it has generated at https://misophoniapodcast.com/research.In this episode, I take it a step further and use AI to generate a conversation about the platform and some of the proposals. Does the world need an AI conversation about AI? Maybe not, but this is a window into making more research more accessible to more people. And I am more than happy to use this podcast to experiment.  -----Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

This week I have two guests, Tressi and Brooklyn Disch. Brooklyn you may know has Brooklyn Disch who is a misophonia coach and has all kinds of resources on her website (link below). Tressi has worked with Brooklyn and has also published a book which is a fictionalization of many of her experiences living with misophonia. Both guests discuss the challenges they faced growing up, the lack of understanding and resources available, and how they eventually connected through a shared Facebook group. They talk about misophonia as not a defect but a trait that can be managed through various strategies, including reprogramming the mind and fostering connections with others who share similar experiences. Both of them have seen their misophonia greatly, greatly reduced. We touch on the skepticism surrounding alternative therapies. They discuss the role of meditation, the impact of childhood experiences, and the importance of understanding and advocating for misophonia as a distinct condition. https://www.tressimitchell.com/ https://brooklyndisch.com/Brooklyn interviewed Tressi recently on her own podcast - check it out here! https://open.spotify.com/episode/1GBTjI75D5iw1IMLq6JgOU?si=-CoQazdlSdi6c3zNjNv3aQ-----Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

This week I'm very happy to bring back Lila, a past guest from August 2023. If you recall that interview, Lila had pretty severe misophonia and was even being triggered by a neighbor during our call. A lot has changed for her in the past couple of years - she is now on the other side of the world, back in the US. She tells her story of recently successfully overcoming misophonia. The modality she credits is hypnotherapy, which has come up in some online spaces as having helped people. In this conversation you'll hear about Lila's background, how she stumbled upon hypnotherapy, how her process works, and what it's been like since she did it, and her current process of follow on sessions she does on her own. I hope this sheds some real talk on a topic that's definitely outside the mainstream and has its supporters, skeptics, and detractors. For the record, as always I'm a curious and open-minded skeptic.Lila on Instagram: xxlilaroseWeb: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISupport the podcast at https://misophonia.shopEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

In this episode of Between Two Ears, I share highlights from my recent experience at MisoCon 2024 (The Misophonia Association convention in Atlanta). I discuss key presentations, including Dr. Jane Gregory's insights on reframing sound experiences for managing misophonia and Jaelline Jaffe's exploration of connections between childhood experiences and misophonia. I also reflect on the importance of informal discussions with other attendees, the thoughtful accommodations that make the event more comfortable, and the unique sense of understanding among fellow misophones. Join me for a firsthand look at this impactful gathering, plus live clips from attendees.Support the show

Paula is a psychology student in France.  Paula first noticed misophonia when she was 13 or 14 years old and felt intense emotions when hearing eating sounds. It took several years for her to discover that misophonia was a real condition. Paula's parents were supportive but initially didn't understand what she was going through. She coped by eating at home and avoiding triggering situations. Paula is now starting therapy to help manage her misophonia and hopes to understand the triggers and find long-term solutions. Just a quick note that due to technical difficulties we got cut off a little abruptly near the end. It was just around the time we were ending anyways so you get pretty much the full conversation. Hope to have Paula on again in the future to maybe talk about her new therapy.  ---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and IEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Rodrigo is a sales exec at a flower factory based outside of Mexico City. He shares his earliest memories of misophonia and how it escalated during college. Rodrigo discusses coping methods, a blow-up with a neighbor over a barking dog, and the impact of misophonia on his relationships with family and partners. Rodrigo shares his experience of finding relief and understanding through the misophonia community and this podcast. He talks about navigating work and friendships, as well as the cultural aspects of Mexico that can trigger misophonia.   ---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Email: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Deb is a New Yorker who has just recently been starting to put together the story of her misophonia. We discuss many of her childhood experiences including some of the chaos that resulted in a lot of tension  in the house growing up. Deb also talks about her marriage and the lack of emotional connection she had with her husband. She reflects on the gifts of high sensitivity and the challenges of misophonia, and how awareness has changed her outlook. She discusses coping mechanisms and the importance of finding a therapist who is open to learning about misophonia. And finally she discusses what's happening now in her relationships with the people in her life.---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Email: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Georgie is a recent neuroscience and psychology dual degree grad from the University of Colorado, Boulder. Georgie's childhood shares many characteristics that I've found to be common among us, that is periods of walking on eggshells, turbulence and volatility.  She also mentions other sensory sensitivities, such as visual triggers and sensitivity to vibrations. Georgie talks about her coping methods, including using white noise headphones and seeking accommodations in school. We talk about the many comorbid conditions she has been diagnosed with and medications she has taken and their effects on her misophonia. She also talks about her plans to pursue a career in clinical psychology. And of course she shares his experiences of social challenges and the shame and guilt associated with misophonia.   ---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Email: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Alana is a security intelligence professional, writer and coach and many other things that are too long to list, plus wife and mom of 3 based in Orange County California. She shares her experiences with misophonia throughout her life, as well other things she has experienced earlier in life including some rather traumatic experiences and an eating order. She discusses how misophonia has affected her relationships, work, and daily life and how she navigates it now either her family and her new environment having moved to California from Scotland. Alana also mentions her involvement in plant medicine retreats and the potential benefits she has experienced.https://alanastott.com/ ---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Email: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Forks on teeth. Lip smacking. Metal on metal. (Don't worry, there are no sonic examples of triggers in this episode!) Why do some of us haaaate certain noises and other folks cannot comprehend how a sound could be so irritating? Let's meet in the middle with a professional Misophonologist, clinical psychologist, and Oxford University research fellow Dr. Jane Gregory. Dr. Gregory not only has misophonia, but has propelled research and public awareness of the condition. We lob so many questions to learn: what it feels like to have it, how many people experience it, the most common sounds that trigger it, what your brain thinks is happening, why certain people or situations may be worse than others, how to be helpful to people with misophonia, headphones, earplugs, exposure therapies, cognitive behavior therapy, experimenting on oneself, age and misophonia, and where zombies fit into it. Visit Dr. Jane Gregory's website and follow her on Instagram and XGet her book, Sounds Like Misophonia: How to Stop Small Noises from Causing Extreme Reactions on Bookshop.org or AmazonRead her papers on ResearchGateA donation went to soQuiet2024 #WorldLizardDay Programming with Dr. Earyn McGeeMore episode sources and linksSmologies (short, classroom-safe) episodesOther episodes you may enjoy: Etymology (WORD ORIGINS), Disgustology (REPULSION TO GROSS STUFF), Neuroparisitology (NATURE ZOMBIES), Food Anthropology (FEASTS), Disability Sociology (DISABILITY PRIDE), Screamology (LOUD VOCALIZATIONS), Dolorology (PAIN)Sponsors of OlogiesTranscripts and bleeped episodesBecome a patron of Ologies for as little as a buck a monthOlogiesMerch.com has hats, shirts, hoodies, totes!Follow @Ologies on Instagram and XFollow @AlieWard on Instagram and XEditing by Mercedes Maitland of Maitland Audio ProductionsManaging Director: Susan HaleScheduling Producer: Noel DilworthTranscripts by Aveline Malek Website by Kelly R. DwyerTheme song by Nick Thorburn

Klaus is an executive in Germany. He shares his experience with misophonia and how it has affected his career and personal life. We talk about growing up in an early family life that was very old-fashioned and rigid, and where he also had a brother who presented signs of possible OCD, and parents who could not understand and were constantly trying to discipline. He discusses the challenges of working in open offices and how certain triggers can disrupt his focus and cause stress. Klaus also explores the idea that being in an active and engaging environment can help distract from misophonic triggers. Klaus also reflects on the role of rigidity in misophonia.  They also discuss the value of connecting with other misophonic individuals and forming communities for support.---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Email: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Tomasz is a primary care doctor from Poland, We talk about how misophonia is not well-known in Poland and is often misunderstood. Tomas explains that his triggers are mostly connected to people he knows well, such as family and close friends. He also mentions being triggered by eating sounds and labored breathing. Tomas discusses how he explains misophonia to others, often using a neurobiological explanation. He also talks about the living conditions he grew up in and how they may have contributed to his misophonia. He shares his coping methods and the challenges he faces in social situations. Tomasz also talks about his discovery of misophonia and the importance of raising awareness about the condition.---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Email: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Dr. Jennifer Brout, Mary, and Liz discuss their experiences as parents of children with misophonia and how they have preserved family relationships. They share their personal journeys of understanding and accepting misophonia, as well as the stages of grief and growth they went through. They emphasize the importance of accommodation, communication, and empathy within the family. They also discuss the challenges of conflicting accommodations and the need for parents to take care of their own mental well-being. Overall, the conversation highlights the resilience and love that families can cultivate in the face of misophonia.  CW: Some talk of suicide ---Web: https://misophoniapodcast.comOrder "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Email: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

It's a scene many of us will have experienced: we're at the cinema, the lights go down, the film begins and then suddenly the person behind us starts rustling a packet of sweets or noisily chomping on popcorn. For most of us this is merely an annoyance and after a while we're able to tune the sounds out and concentrate on enjoying the cinematic experience. But for some, it can be unbearable and engender feelings of distress, anger and even panic. These people are experiencing misophonia. In this episode, we catch up with Dr Jane Gregory, a clinical psychologist and author of the book Sounds Like Misophonia: How to Stop Small Noises from Causing Extreme Reactions. She tells us what's going on in our brains when we experience a misophonic reaction, how it can trigger our fight or flight response and why it's surprisingly common. Learn more about your ad choices. Visit podcastchoices.com/adchoices

Tracey and Leah are a mother and daughter living near Philadelphia who both have misophonia, and in fact Leah attends the same school Tracey teaches at. We talk about their first triggers and how they were received across the decades. We talk about how Tracey's misophnonia informs how she helps her daughter. Tracey also shares how Buddhism has helped her and Leah talks about accommodations she gets at school. Finally we spend some time at the end talking a little more philosophically about what we think about misophonia, is it a medical defect or a trait with a message. I do just want to point out this was being recorded outdoors so you will hear some birds chirping and very occasionally a low rumble here and there. ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Marina is originally from Romania and now lives in the UK. Like many others who have been on the podcast recently, Marina only recently found out about misophonia and has been learning as much as she can and has been diving into the book Sounds Like Misophonia by Dr. Jane Gregory and I. We talk about the challenging environment of her childhood with an alcoholic father, there is mention of abuse in the home so I want to note a content warning. Her family life became quite strained due to their lack of understanding of what she was going through and we talk about various coping methods including makeshift earplugs and finally leaving home for university. And we talk about how her fiancé has been coping with her misophonia and her interesting career journey initially in the legal profession and now as a dental nurse. Great conversation and it's exciting to hear someone find solace in speaking out about misophonia and finding comfort in the community.     ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Emily lives in a small town in Georgia. She only recently learned about misophonia and that others share the experience she has felt most of her life. This is the first time she's spoken with another misophone about it. She recalls the earliest triggers she experienced as a child from her brothers, and how she tried to suppress her reactions. We talk about common triggers like whistling and bouncing basketballs. Emily shares her strategies for dealing with triggers, such as using headphones or leaving the situation. Emily emphasizes the need for awareness and understanding of misophonia, and how it has helped her to open up and talk about her experiences.    ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Ben is from Kentucky and now lives and works in Indiana. This is the first time Ben has talked about misophonia and he shares a lifetime of experiences going back to his toddler years which had some very negative events and I want to just issue a content warning that there is some discussion of abuse at the hands of a babysitter. He discusses his early memories of being triggered by chewing gum and then the challenges growing up with misophonia, especially in quite male and sort of macho environments. Ben was also a minor league baseball player and we talk about some of the unique challenges in that environment. We talk about how he copes and how he handles it now with his family and son.    ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Jennifer is from North Carolina. We talk about her early memories from her toddler years. She talks about her journey of seeking therapy and eventually being diagnosed with ADHD, which provided some understanding and accommodations. We talk about the potential interplay between genetics, early childhood development, and trauma. How stress and cortisol levels may exacerbate symptoms, and even talk about her alopecia, which is related to stress. She shares her experiences with specific triggers like whistling, and how she manages them. And finally she talks about really wanting to connect with others in the misophonia community.    ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Rosie is based in Newcastle and heard about the podcast from Newcastle-based misophonia researcher Paris Ash. She first noticed it as a teenager with the sound of her mom's chewing, later expanded to include other people and sounds. She struggled with guilt and shame and felt misunderstood by her family. Rosie found support from her understanding sister and her partner, who create spaces where she feels safe. We talk about coping methods using headphones, avoiding triggers, and seeking understanding from those around her. She reflects on the connection between misophonia and dysregulation of emotions, as well as the impact of her upbringing on her condition. We also talk about the importance of self-care and self-compassion in managing the condition.     ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the Show.

Bahar is a screenwriter and filmmaker based in Iran who created the short film 'Quarantine Redemption', a 13-minute musical comedy with no dialogue about misophonia in an apartment during the COVID pandemic. We talk about her interest in exploring sound and psychology in her work. She explains that while she doesn't have misophonia herself, she believes that sound plays a significant role in everyday life and emotions. The film follows a man who suffers from misophonia and finds solace in music that synchronizes with his wife's movements. Bahar also mentions her plans to make future feature films that explore the theme of blocking outside sounds. She is currently deciding on a film school in the United States to pursue her MFA in filmmaking. https://woodsholefilmfestival.org/events/thequarantineredemption/    ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Luis is a translator based in Puerto Rico. Luis' misophonia came up actually since the pandemic and he discusses the triggers he faces, such as construction noises and noises in places he's lived. We spend a lot of time talking about empathy, or lack thereof from friends, family, and workplaces, and the challenges of finding understanding and validation. We also talk about the potential overlap with hyperacusis. Luis also reflects on his childhood experiences and how misophonia has influenced his pursuit of music. And finally, Luis explores the intersection of misophonia and spirituality, highlighting the role of self-care and empathy in managing miso.   ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Maja is a college student in Connecticut studying psychology. We spend a lot of time talking about her past, and the strained relationships with her family members that she had growing up and how they were impacted by misophonia. We hear about her father's volatility and trouble with alcohol, the difficulty in being understood and accommodated at home. We talk about life at school and with friends and how it's difficult sometimes to know how much to share. And we spend a lot of time discussing therapy and healing from modalities such as parts work and inner child healing, mind-body regulation and how she is exploring various sides of spirituality. I love these episodes that delve into the childhood links to misophonia. It comes up a lot and in my opinion is being ignored by the research community in favor of surface-level approaches that can be delivered in a fixed period of time.   ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Rachel is a barista and bartender in Philadelphia. We talk about her early experiences with misophonia, coming at a young age which was a turbulent and volatile at home. We talk about how she has been unpacking a lot of this during her recent findings during her own therapy. She also talks about her college experience and the coping strategies she developed like breathing and meditation practices as well as setting boundaries in relationships with her family. She highlights the importance of understanding and support from loved ones and the challenges of navigating partner relationships with misophonia.    ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

This week I'm bringing back a guest who has been one of the most popular guests on the show. Kresta is a trama therapist and founder of Misophonia Freedom Lab. If you recall Kresta had misophonia and says she has been able to overcome it. We talk about that of course, but we also focus on the idea of HSP, highly-sensitive people. There is overlap between the two and I think it's always illuminating to learn about HSP to inform misophonia, and vice versa.Kresta also talks about some exciting projects like the Misophonia Freedom Project which is looking to gather data from people who say they have overcome their misophonia and try to find patterns and pathways that might be useful for others.   Kresta's blog on HSP: https://www.misophoniafreedomlab.com/post/how-understanding-trait-of-highly-sensitive-person-can-help-us-understand-and-cope-with-misophonia   Blog on her "Love letter to rage": https://www.misophoniafreedomlab.com/post/a-love-letter-to-rage-you-were-so-misunderstood-i-m-sorry  Misophonia Freedom Project: https://www.misophoniafreedomlab.com/about-1 Misophonia Freedom Project (Sara Bidler's website):  http://www.authenticlivingts.com/misophonia-freedom-project.html   ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowSoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

In this week's episode, we are in the world of noises. Certain noises can be so annoying that some people feel the need to harm the noise maker! Maybe, though, it's not your fault. Maybe you suffer from something called Misophonia. Author of “Sounds Like Misophonia”, Dr. Jane Gregory takes us through everything there is to know about Misophonia, including her own emerging research. We also learn how useless Dave is at being a strong protective man. As for the elephant in the waistcoat, you'll just have to listen to discover what that's all about!Presented and Produced by Neil Delamere and Dave MooreEdited by Cathal MinogueMusic by Dave MooreArtwork by Ray McDonnell To listen to Dave on the radio it'shttps://www.todayfm.com/shows/dave-moore-1499732 For more info on Neil's gigs seewww.neildelamere.com/gigsDr. Jane Gregory's book: https://soundslikemisophonia.com/book Hosted on Acast. See acast.com/privacy for more information.

Dr Jame Gregory is a clinical psychologist and researcher based at the University of Oxford. She has written with Adeel Ahmod a very helpful book on Misophonia that clinicians, those with misophonia and significant others will truly benefit by. She helps clarify why misophonia often gets attached to a significant person and details a program of therapy that can lessen the severity of this condition. It is really a must read for anyone concerned with this condition, but first listen to the podcast because her passion for this material is so evident.

Taylor is a project manager in California. Taylor talks about her home life and how growing up with alcoholic parents may have contributed to her misophonia. She also discuss their hypersensitivity and how it affects her relationships. She shares her experiences in school and the support she received from teachers along the way. She shares how she copes with triggers and the importance of supportive relationships. Taylor also talks about seeking professional help and her experience with hypnotherapy. She highlights her passion for music and how it serves as a creative outlet. We also end with some of the positive aspects, or lessons that can come from living with misophonia.     ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

This week I'm talking to Bob, from Liverpool. He shares his experience with misophonia and how it has impacted his life. He discusses his early triggers and reactions, as well as the lack of understanding and resentment he felt from his family. Bob also talks about the expansion of his triggers and the sensory issues he faces. He explores the role of the amygdala in misophonia and the challenges of coping strategies. Finally, he discusses the connection between misophonia and bipolar disorder and his search for solutions. Bob also discusses his coping methods for misophonia and how he manages his psychotic episodes. He shares his experiences with different treatments, including bilateral stimulation and a ketogenic diet. Bob also talks about the impact of misophonia on his relationships and how he communicates his needs to others. He emphasizes the importance of improving overall health and finding individualized coping strategies.  ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

I'm excited to have back on the show, Dr. Jennifer Brout.  We discuss various aspects of misophonia, including family accommodations, coping skills, and the importance of research. Jennifer emphasizes the need for more research on family functioning and children's development in relation to misophonia. We also talk about the role of epigenetics in gene expression and the potential adaptive nature of misophonia. We talk about neuroscience, epigenetic and the possible role of evolution on misophonia and sensory disorders more broadly. She emphasizes the need for multidisciplinary research, guidelines for seeking treatment, and the importance of an accurate description of misophonia.   ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Esther is a student in the UK. She talks about her journey of healing through prayer and the positive impact it has had on her misophonia. She discusses the challenges she faced in school and how she found relief through noise-canceling headphones. Esther emphasizes the importance of supportive relationships and understanding from family and friends. She encourages others to explore the connection between faith and healing in their own lives.   ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

In this conversation, Sipora and Adeel discuss the topic of misophonia and the use of coherence therapy in its treatment. Sipora shares her personal journey with misophonia and how she became interested in helping others with the condition. They delve into the concept of memory consolidation and how it relates to misophonia. Sipora explains the process of coherence therapy and its focus on emotional learning. They also touch on the role of neuro-linguistic programming (NLP) in misophonia treatment. The conversation concludes with a discussion on the importance of nervous system regulation and self-care in managing misophonia. In this conversation, Adeel and Sipora discuss the complexity of misophonia and the potential for healing. They explore the concept of multiple memories and schemas, highlighting the need to heal all inner children and schemas associated with misophonia. The conversation delves into different therapeutic techniques, including coherence therapy and EMDR, as well as the potential of medications like propranolol. They challenge the concept of misophonia as a permanent disability and emphasize the brain's ability to change. The conversation concludes with a discussion on the importance of personal work and the ongoing journey of understanding and managing misophonia. siporaweissman.com TakeawaysCoherence therapy is a treatment approach that focuses on memory consolidation and emotional learning.Misophonia can be a complex condition with different triggers and responses for each individual.Nervous system regulation and self-care are important factors in managing misophonia.Other therapies, such as neuro-linguistic programming (NLP) and internal family systems (IFS), may also be helpful in treating misophonia. Misophonia can be a complex condition with multiple memories and schemas associated with it.Healing all inner children and schemas is crucial in addressing misophonia and complex trauma.Different therapeutic techniques, such as coherence therapy and EMDR, can be effective in treating misophonia.The brain has the ability to change, and misophonia is not necessarily a permanent disability. ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

This week I'm talking to Liz who was actually a guest back in season 5. We catch up and she shares how her misophonia is triggered by repetitive sounds and how it has affected her interactions with others. Liz also talks about her son's autism and how his sensory processing disorder differs from her misophonia. The conversation explores the evolutionary aspect of misophonia and the need for a shift in societal understanding and support for neurodivergent individuals. She discusses her use of humor as a coping mechanism for misophonia. She shares stories of unusual encounters and stupid situations that have occurred throughout her life. Liz also talks about her love life and relationships, including the challenges she faces due to misophonia. She discusses her coping methods, such as listening to music, and the paranoia she developed during postpartum depression. Liz also mentions her comorbid condition of migraines and the lack of awareness and connections she has found with other misophonia sufferers. Lastly, she discusses the challenges of accessing appropriate therapies for her son's autism. ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Seiara is the host of the Behind the Stigma podcast. She shares her academic journey in psychology and her plans for a PhD in the philosophy of psychiatry. She discusses her early experiences with misophonia and the complexity of the condition. Seiara also talks about cultural attitudes towards mental health in Dubai and Azerbaijan. She shares her family dynamics and their reactions to her misophonia. Finally, she explores the effectiveness of exposure therapy and discusses recent neurostimulation studies for misophonia. The conversation explores the topics of neurostimulation and misophonia, the side effects of neurostimulation, visual triggers and misophonia, boundary issues and misophonia, the concept of Highly Sensitive Person (HSP), the validity of HSP in psychology, constructs and personal identity, attachment theory and misophonia, the impact of dysregulated behaviors, personal experiences with dysregulated behavior, self-exploration and healing, and mind-body integration and senses. Behind the Stigma podcast TakeawaysNeurostimulation is a potential treatment for misophonia, but more research is needed to understand its effectiveness and potential side effects.Visual triggers, such as certain movements, can also be a trigger for individuals with misophonia.Misophonia may be related to boundary issues and a sense of violation when personal space is invaded.The concept of Highly Sensitive Person (HSP) can provide insights into misophonia and other sensitivities but one should be careful of oversimplified constructs.Childhood experiences, including attachment styles and dysregulated behaviors, may contribute to the development of misophonia.Self-exploration and finding activities that regulate the nervous system, such as conscious dancing, can help manage misophonia triggers.Mind-body integration and reconnecting with the senses may be beneficial for individuals with misophonia. ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Dan Shay, a visual artist, discusses his experience with misophonia and how it has impacted his daily life and relationships. He shares his journey of discovering misophonia and the challenges he faced in explaining it to others. Dan talks about his coping mechanisms, including the use of earplugs and meditation apps. He also explores the potential of using art to raise awareness about misophonia and the intersection of art and technology in expressing the condition. Overall, Dan emphasizes the importance of understanding and support from friends and family in managing misophonia. In this conversation, Dan Shay discusses his future projects and the role of art as a reflection of the world. He talks about exhibiting his work in various locations and the accessibility of sharing art online. Dan also shares his coping mechanisms and the importance of control in managing misophonia. He highlights the significance of creating circumstances for comfort and the support he has received from others. Additionally, he mentions his involvement with the Scottish Mental Health Arts and Film Festival and reflects on the challenges of technology in understanding misophonia. https://www.danshay.co.uk  TakeawaysMisophonia can have a significant impact on daily life and relationships.Coping mechanisms such as earplugs and meditation apps can help manage misophonia triggers.Art can be a powerful tool for raising awareness about misophonia and expressing the condition.Understanding and support from friends and family are crucial in navigating the challenges of misophonia. Art can create space for reflection on how we see the world and how it affects us.Sharing art online can make it more accessible to a wider audience.Coping mechanisms and control can help manage misophonia.Creating circumstances for comfort is important in dealing with misophonia.Support from others can make a significant difference in managing misophonia.The Scottish Mental Health Arts and Film Festival is a valuable platform for raising awareness.Technology can sometimes contribute to the misunderstanding of misophonia. ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Shaylynn shares her misophonia origin story and how her triggers developed over time. She discusses the impact of misophonia on her school life and the accommodations she received. Shaylynn emphasizes the importance of supportive friends and family in coping with misophonia. She talks about her journey as a misophonia advocate and her involvement with Misophonia International and the Research Network. Shaylynn also discusses her plans for starting a nonprofit and the projects she has in mind. She highlights the need for more research on misophonia and the importance of setting boundaries and seeking professional help. In this conversation, Shaylynn discusses cultural differences in acceptance of misophonia, the relationship between sensory processing disorder (SPD) and misophonia, challenges in SPD advocacy, the fascination with misophonia, research discrepancies between SPD and misophonia, the role of research in misophonia and SPD, the International Misophonia Foundation, promising therapies for misophonia, Shaylynn's non-misophonia projects, family history of sensitivities, the controversy surrounding the DSM, and final thoughts and advice.  https://misophoniainternational.com  https://misophoniafoundation.com  ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address. YouTube channel (with caption transcriptions) Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter/X - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Summary In this conversation, Carolyn shares her experiences living with misophonia and offers insights into coping strategies and managing triggers in various environments. She emphasizes the importance of normalizing misophonia and open communication in intimate relationships. Carolyn also highlights the benefits of nature and sensory grounding techniques for finding relief. The conversation touches on the impact of stress on misophonia and the challenges of living in an RV with the condition. TakeawaysMisophonia stories need to be shared and normalized to raise awareness and understanding.Coping strategies like mental mantras and sensory grounding techniques can help manage misophonia triggers.Open communication is crucial in intimate relationships to navigate misophonia triggers.Nature and outdoor environments can provide relief from misophonia triggers.Stress levels can impact the intensity of misophonia triggers.Living in an RV can present unique challenges for individuals with misophonia. ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

In this conversation, Victoria, a lecturer and misophonic individual, shares her experiences with misophonia. She discusses her childhood experiences and the impact of certain triggers, such as chewing, clocks ticking, and water sounds. Victoria also talks about the challenges she faces as a lecturer and how she copes with misophonic triggers in the classroom. She reflects on the cultural differences in accepting eating in classrooms and the potential genetic component of misophonia. Victoria also shares her experiences with bullying and the coping methods she developed. In this conversation, Victoria and Adeel discuss coping methods for dealing with misophonia, including journaling and embracing authenticity. They also explore the physical symptoms and stress associated with misophonia, as well as how it affects adult life and relationships. Victoria shares her experiences of speaking up about misophonia and the reactions she has received. They discuss the connection between misophonia and other sensory sensitivities, as well as the importance of calming the nervous system. Finally, they touch on the potential for qualitative data to contribute to a better understanding of misophonia.---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Mark is a musician from Manchester, now living in Los Angeles. Mark has opened for Queens of the Stone Age and played the legendary Viper Room in LA. A while back, Mark sent me the video to his song about misophonia, that I've linked to below and posted on social media. We finally got a chance to talk and get into his life story with miso. We talk about his brother as his first trigger, being the black sheep of the family, the anticipatory nature of misophonia, humor as a necessary coping mechanism, his thoughts on frequency sensitivity, Transcendental Meditation, as well as being triggered by different voices and accents. https://youtu.be/sdkhhaKQEXw   ---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Julia is a grad student on track to be a mental health counselor. She has misophonia and has spent a lot of time thinking about miso from various angles. This is a really wide-ranging discussion. We talk about how the pandemic was really rough with her violinist roomates, occupational therapy, having ADHD and being on the autism spectrum, her experience seeing exposure therapy performed on misos, her experience with medication, crano-sacrial therapy, HSP, EMDR, psychodynamic therapy, IFS...---Order "Sounds like Misophonia" - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

The word 'misophonia' describes a condition that statistically, 20 per cent of you have: an extreme reaction to certain sounds. "For me, it was a relief to have a word for what I'd been experiencing," says Dr Jane Gregory, author of the new book Sounds Like Misophonia: How to Stop Small Noises from Causing Extreme Reactions, "because I thought for a long time that I was really uptight or maybe a bit controlling over other people, and that that was a problem with my character, as opposed to it actually being a problem with the way that my brain processes sounds." Jane offers advice for handling with misophonia, including some very simple verbal techniques. Find out more about this episode and the topics therein and read the transcriptl at theallusionist.org/misophonia. This episode was produced by me, Helen Zaltzman. Martin Austwick of Neutrino Watch and Song By Song podcasts provides the Allusionist music. Become a member of the Allusioverse at theallusionist.org/donate and as well as keeping this independent podcast going, you get regular livestreams and watchalong parties - AND to hang out with your fellow Allusionauts in our delightful Discord community. You can also sign up for free to receive occasional email reminders about Allusionist stuff. The Allusionist's online home is theallusionist.org. Stay in touch via facebook.com/allusionistshow, instagram.com/allusionistshow, youtube.com/allusionistshow and twitter.com/allusionistshow. Our ad partner is Multitude. If you want me to talk lovingly and winningly about your product or thing on the show in 2024, sponsor an episode: contact Multitude at multitude.productions/ads. This episode is sponsored by: • Wildgrain, the subscription box for sourdough breads, fresh pastas, and artisanal pastries that you can cook from frozen in 25 minutes. Get $30 off your first box, PLUS free croissants in every box, when you start your subscription at Wildgrain.com/allusionist or use promo code ALLUSIONIST at checkout.• Bombas, whose mission is to make the comfiest clothes ever, and match every item sold with an equal item donated. Go to bombas.com/allusionist to get 20% off your first purchase. • Squarespace, your one-stop shop for building and running your online empire. Go to squarespace.com/allusionist for a free 2-week trial, and get 10 percent off your first purchase of a website or domain with the code allusionist. Support the show: http://patreon.com/allusionistSee omnystudio.com/listener for privacy information.

Aaryn is an artist based in North Carolina. We talk about marriage and family, art, yoga, the mind-boy connection, the fascia, supplements and medication and much more. Check the show notes for links to Aaryn's art projects.  https://www.aarynwest.com https://www.instagram.com/aarynwest  ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Extreme sensitivity to sound and misophonia (yes, it has a name) is a topic that doesn't get nearly enough attention in the mental health community so this week on Disordered we were lucky enough to have Dr. Jane Gregory stop by to talk about this often under-represented challenge. Dr. Jane has struggled with misophonia since childhood so not only is she academically and professionally well-versed in the topic, she's lived this experience herself. Dr. Jane has immersed herself in misophonia research which is revealing some amazing insights into this issue and how it can be addressed by clinicians, and has even written a book on the topic ("Sounds Like Misophonia"). Today's discussion touches on not just anxiety triggered by sound, but also on the emotional, social, familial, and cultural impacts of this issue. People struggling with misophonia can often find themselves feeling isolated, and questioning themselves when triggered. Misophonia sufferers may find themselves confused as to why it feels like there are misophonia and non-misophonia versions of themselves. Even if you do not struggle with misophonia or extreme sound sensitivity, this episode is worth a listen because it is chock-full of great information applicable across many of the topics we cover on Disordered. Oh, and apologies for the fact that Josh was out rubbing elbows on celebrity podcasts rather than recording, and for the absence of the now traditional screaming American eagle sound effect in this one. I'm sure he'll bring it back next week. ;-) Find Dr. Jane Gregory online: https://instagram.com/drjanegregory https://instagram.com/soundslikemiso https://soundslikemisophonia.com ---- If you love Disordered and think you might benefit from spending 30 full days in an everyday intensive small group recovery support group led by Josh and Drew,⁠⁠ check out Disordered Boost at https://disordered.fm/boost⁠⁠ ----- Want to ask us questions, share your wins, or get more information about Josh, Drew, and the Disordered podcast? Visit us on the web at ⁠⁠⁠⁠https://disordered.fm⁠⁠⁠⁠ Disclaimer: Disordered is not therapy or a replacement for therapy. Listening to Disordered does not create a therapeutic relationship between you and the hosts of the podcast. Information here is provided for psychoeducational purposes. As always, when you have questions about your own well-being, please consult your mental health and/or medical care providers. If you are having a mental health crisis, always reach out immediately for in-person help.

Does the sound of ticking clocks, noisy eating, or loud breathing cause you physical distress? If so, you may be one of every five people who suffer from misophonia. The condition can trigger fight-or-flight mode, a surge of rage, anxiety, disgust or an urge to escape the sound as soon as possible. Oxford University-based Australian clinical psychologist and misophonia sufferer Dr Jane Gregory has written a practical guide to coping with the condition.

Victoria is from central Oregon in the Pacific Northwest. We talk about life as a fisheries observer working on fishing boats for days at a time, her sometimes challenging childhood with mental illness in the family, coping methods she's used like medication and alcohol, how she deals with airplanes and more.   ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Kristina is in Bulgaria. We talk about being a new mom, heading back to a hybrid work environment, being an advocate for misophonia in Bulgaria, being triggered by children and family members and much more.  ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Paris is a PhD student researching misophonia at the University of Newcastle. She has been making a name for herself already having published papers alongside Dr. Kumar who is very well-known for his seminal papers on the brain basis of misophonia. Here we talk about her work on mimicry, mirror neurons, how she got into miso research, visual triggers and other senses, autism, trauma, how to break into misophonia research, new ideas for public engagement and a lot more.  ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Risa lives in Halifax, Nova Scotia, Canada and has been dealing with misophonia for about 60 years. We talk about being neurodivergent, family life both many decades ago, and in the present day and all the challenges along the way, raising her child while having miso, difficult neighbors, her thoughts on meditation and various psychotherapies, and of course much more. ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Shane is a broadcaster/podcaster and writer based in London, Ontario, Canada. Shane has just published an ebook based on his mental health recovery.  He's also a mental health advocate in Canada, working for the national program Defeat Depression. And also he is a fellow misophonia podcaster because he briefly had a show called Fight or Flight. We talk about all those, plus his relationship with his family especially his mom, ADHD, frontal lobe atrophy, marijuana and its effects on him and a lot more. Ebook website - Use code FAMEFAM45 for 45% off  Instagram ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

James is a US military veteran and now a management consultant on a break from his job to deal with misophonia. We talk about how it got really bad during the pandemic, living in a college dorm janitorial closet, coping methods when traveling, life in the military, working with Tom Dozier, and using drugs and alcohol to self-medicate. Really fascinating and wide ranging conversation.  ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Nina is a massage therapist and herbalist. We talk about growing up in a bit of a chaotic home, damage to her relatioship with her brother who was her main trigger, we talk about Loop earplugs, having OCD and ADHD, and how various herbs and plants have been helping her nervous system. Nina's website: https://lucialunare.com    ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

This week I'm talking to Paige and her family, dad Michael, and mom Kelly. Paige is starting high school and we talk about the family's experience so far dealing with misophonia. It's been quite a journey but Paige's parents have been determined to find solutions and coping methods for Paige. The family has also been part of some major advocacy projects in their hometown, including Halloween and Christmas fundraisers and Misophonia Awareness campaigns in partnership with their mayor.   ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Lila is a musician and educator whose important work is focused on protecting animals and the planet. She's currently based in Indonesia although she is there by way of Los Angeles. We talked about many things including misophonia while traveling, coping when you don't have your own space in a new place, we talk about being an empath and HSP, shamanism, and some parallels between the state of the public perception of misophonia and that of climate issues.  Lila's links: https://lilaroseworld.com https://www.youtube.com/singlilarose https://www.instagram.com/xxlilarose  ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

CJ is a college student and big advocate for misophonia in the community. I was really happy to finally chat with him. We talk about how he explains miso, his work with soQuiet, stress as an exacerbator, and some questions for you listeners. CJ's website: https://cjgibson46.wixsite.com/eportfolio  ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and ISponsored by the personal journaling app I developed:Basal - hellobasal.comFor iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Ross is a musician and composer based in Glasgow. Ross reached out earlier this year and we immediately hit it off, since we share a lot of creative interests and  I also like to compose when I have time. Here we talk about everything from his quite happy childhood and getting on great with his parents, the scourge of Scottish seagulls, bad techno, terrible bouts with migraines, and a healing moment he recently had with a specific sound that was recently a big problem. Check out Ross's music at his Bandcamp page: https://rosswhyte.bandcamp.com ---Pre-order Sounds like Misophonia - by Dr. Jane Gregory and I Sponsored by the personal journaling app I developed:Basal - hellobasal.com For iOS and AndroidWriting prompts and summaries for your journal entries by AI from the perspective of a therapist.Web: https://misophoniapodcast.comEmail: hello@misophoniapodcast.comSend me any feedback! Also, if you want some beautiful podcast stickers shoot over your address.Coaching: If you're interested in misophonia coaching by me, shoot me an email or go to this form. I am setting up a virtual practice to help people manage misophonia for themselves or loved ones.YouTube channel (with caption transcriptions)Social:Instagram - @misophoniapodcastFacebook - misophoniapodcastTwitter - @misophoniashowDownload the official Misophonia Podcast app!For iOS and AndroidPodcast episodes, background sounds, a trigger journal, a panic button, and tons of resources on all things miso. Absolutely free!SoQuiet - Misophonia Advocacyhttps://soquiet.orgSupport the show

Everyone is bothered by certain sounds – chewing noises, dogs barking, babies crying, leaf blowers, but 20% of the population could have a very different, more visceral reaction - anger and panic! These intense reactions are attributed to a real condition called misophonia and it's only the tip of the iceberg in terms of how noise is increasingly driving us insane. Really, no really! In a previous episode (S1/E15) Jason discovered that Peter has misophonia, defined by WebMD as a disorder in which certain sounds trigger emotional or physiological responses that some might perceive as unreasonable given the circumstance. Jason and Peter wanted to better understand what this condition is since it affects so many people, so they sought out Dr. Jane Gregory, a clinical psychologist and researcher based at the University of Oxford. She is a leading expert in therapy techniques adapted specifically for misophonia and set up two of the first NHS psychology services for misophonia in the UK. She's also the author of the forthcoming book, “Sounds Like Misophonia: How to stop small sounds from causing extreme reactions.” And she really hates the sound of her husband* eating and breathing. Some of the topics they discuss: The proliferation of noise pollution and its dangerous effects on society. Ways to tell if you have misophonia. Why Queen Elizabeth only allowed rounded ice cubes. Can misophonia cause road-rage and other extreme behavior? Why more Americans have become more sensitive to noise. Techniques sufferers can adopt to help cope with this condition. How environmental sounds create anxiety and stress in the body. How noise levels are affecting birds, frogs and other animals' patterns and mating habits. The quietest place on Earth. Learn more about Dr. Gregory: WEBSITE: SoundsLikeMisophonia.com Instagram & Twitter: @SoundsLikeMiso You can follow us: Online: www.ReallyNoReally.com Instagram: @reallynoreallypodcast YouTube: @reallynoreallypodcast TikTok: @reallynoreallypodcast Facebook: @reallynoreallypodcast Twitter: @reallynoreally_ Watch full episodes on YouTube www.youtube.com/@reallynoreallypodcast *They are doing fine.See omnystudio.com/listener for privacy information.

In this episode, Lyn Hejinian reads four untitled poems from The Book of A Thousand Eyes.Lyn Hejinian is a poet, translator, editor, and scholar whose literary career has been long associated with Language writing. Hejinian is the author of over twenty-five volumes of poetry and critical prose, the most recent of which are Tribunal (Omnidawn Books, 2019), Positions of the Sun (Belladonna, 2019), and a revised edition of Oxota: A Short Russian Novel (Wesleyan University Press, 2019.) Fall Creek, her latest long poem, is forthcoming from Litmus Press. A book of critical essays titled Allegorical Moments: Call to the Everyday will come out in Fall 2023 (Wesleyan University Press), and The Proposition, a critical edition of Hejinian's uncollected early work, is forthcoming from the University of Edinburgh Press (spring 2024). She is the editor of Tuumba Press, the co-director (with Travis Ortiz) of Atelos, a literary project commissioning and publishing cross-genre work by poets, and co-editor (with Jane Gregory and Claire Marie Stancek) of Nion Editions, a chapbook press. She lives in Berkeley, California.(Photo by Doug Hall)Links:Read four poems from The Book of a Thousand EyesBrief Interview and more at Omnidawn Press Bio and poems at Poets.orgBio and poems at the Poetry FoundationReadings, Talks, Q&As, and Lectures at PennSoundHejinian's books reviewed by Publishers Weekly

In this episode, Lyn Hejinian reads four untitled poems from The Book of A Thousand Eyes.Lyn Hejinian is a poet, translator, editor, and scholar whose literary career has been long associated with Language writing. Hejinian is the author of over twenty-five volumes of poetry and critical prose, the most recent of which are Tribunal (Omnidawn Books, 2019), Positions of the Sun (Belladonna, 2019), and a revised edition of Oxota: A Short Russian Novel (Wesleyan University Press, 2019.) Fall Creek, her latest long poem, is forthcoming from Litmus Press. A book of critical essays titled Allegorical Moments: Call to the Everyday will come out in Fall 2023 (Wesleyan University Press), and The Proposition, a critical edition of Hejinian's uncollected early work, is forthcoming from the University of Edinburgh Press (spring 2024). She is the editor of Tuumba Press, the co-director (with Travis Ortiz) of Atelos, a literary project commissioning and publishing cross-genre work by poets, and co-editor (with Jane Gregory and Claire Marie Stancek) of Nion Editions, a chapbook press. She lives in Berkeley, California.(Photo by Doug Hall)Links:Read four poems from The Book of a Thousand EyesBrief Interview and more at Omnidawn Press Bio and poems at Poets.orgBio and poems at the Poetry FoundationReadings, Talks, Q&As, and Lectures at PennSoundHejinian's books reviewed by Publishers WeeklyMentioned in this episode:KnoxCountyLibrary.orgThank you for listening and sharing this podcast. Explore life-changing resources and events, sign up for newsletters, follow us on social media, and more through our website, www.knoxcountylibrary.org.Rate & review on Podchaser

Clinical psychologist and misophonia researcher Dr. Jane Gregory (@drjanegregory) and comedian Steve Hall (@astevehall) return to the show to talk with Matt, Jesse and Andy about Jane's work studying misophonia, what to do if your spouse's breathing drives you insane, and what's on the horizon for treating the condition. Trigger non-warning: This episode contains NO examples of misophonia-triggering sounds. That we know of.

Dr. Jane Gregory is a clinical psychologist and misophonia researcher at Oxford University... she also has misophonia herself! Find her on the web and social media at the links below. We go over too many things to list in this almost 90 minute episode, including therapies she uses in her practice, the misophonia research she is conducting at the Department of Experimental Psychology at Oxford, and of course her misophonia life story. Part of her work centers around the S-5 questionnaire to measure misophonia. We actually go over my results from the questionnaire and you can follow along with the chart posted here and in the show notes!  Links:  soundslikemisophonia.com  On Instagram  On Twitter  Oxford Experimental Psychology  Oxford Psych Centre  Adeel's S-5 Questionnaire Results Note: This was recorded before the latest paper by Dr. Kumar regarding the motor cortex but feel free to ask about that on social media if you like . Sponsor: My daughter launched a new podcast, The Animal Q&A Podcast. Perfect for kids of all ages! --- Web: https://misophoniapodcast.com Email: hello@misophoniapodcast.com Send me any feedback! Also, if you want some beautiful podcast stickers shoot over your address. YouTube channel (with caption transcriptions) Social: Twitter - @misophoniashow Instagram - @misophoniapodcast Facebook - misophoniapodcast Support other misophones: The Miso List is a directory of products and businesses owned by misophones! Check out the list and submit your own! Support the podcast: The Misophonia Podcast Shop is live... you'll find t-shirts, mugs, backpacks, tote bags even socks and aprons all emblazoned with the podcast logo. All proceeds go towards producing the show, reaching new audiences, and research for misophonia. Go to https://shop.misophoniapodcast.com Note on audio: Each episode is edited to remove as many obvious triggers as possible. A layer of brown noise is also added to help mask triggers too. Music: "jltf" by Moby, courtesy of mobygratis.com   Disclaimer: The contents of this podcast should not be taken as medical or therapeutic advice. The opinions expressed are solely of the host and guest.   Support the show (https://shop.misophoniapodcast.com) Support the show (https://www.patreon.com/misophoniapodcast)

Twenty years ago, a 1939 poster printed by the British government with the words ‘Keep Calm and Carry On’ turned up in a second-hand bookshop in Northern England. And lo! A decor trend was born: teatowels, T-shirts, mugs, phone cases, condoms, and a zillion riffs on the phrase. Bookshop owner Stuart Manley talks about unearthing the poster that spawned countless imitations; author Owen Hatherley explains why the poster was NOT, in fact, an exemplar of Blitz Spirit and British bulldog courage and whatnot; and psychologist and therapist **Jane Gregory **considers whether being told to keep calm can keep us calm. Find out more about this episode, the subject matter and the interviewees, at theallusionist.org/keepcalm. The Allusionist is a proud member of Radiotopia from PRX, a collective of the finest independent podcasts. Find them all at radiotopia.fm. The Allusionist's online home is theallusionist.org. Stay in touch at twitter.com/allusionistshow, facebook.com/allusionistshow and instagram.com/allusionistshow. This month, the Allusionist is sponsored by: BetterHelp online licensed professional counselling. Get started today at http://betterhelp.com/allusionist and receive a 10% discount off your first month with the discount code allusionist. Mejuri, ethically sourced fine jewelry for everyday wear, without the markups. Visit mejuri.com/allusionist for 10% off your first order. Molekule, air purification reinvented. For 10% off your first air purifier order, visit molekule.com and at checkout enter the code allusionist10. Bombas socks, thoughtfully engineered for comfort and durability - and for every pair of socks you buy, Bombas donates a pair to someone in need. Get twenty percent off your first purchase at Bombas.com/allusionist. Squarespace, your one-stop shop for creating and running a good-looking and well-working website. Go to squarespace.com/allusion for a free trial, and use the code ALLUSION to get 10% off your first purchase of a website or domain. Progressive. See your insurance options and start a quote online at progressive.com.

Special Guest: Dr. Jane Gregory In this show, it is my great pleasure to be speaking with Dr Jane Gregory, Clinical Psychologist, on the subject of Misophonia - something that Jane and I both have in common.  Misophonia is selective sound sensitivity syndrome, where people react to certain sounds, referred to as 'triggers.'  I hope this show is enlightening, and I trust it is of help to any sufferers of this condition. www.cognitivebehaveyourself.com  www.soundslikemisophonia.com  https://www.facebook.com/groups/misophoniasupport/ 

When you’re feeling unwell, what’s the book you read to make yourself feel better? And why does it work? Clinical psychologist Jane Gregory explains why she sometimes prescribes novel-reading to her patients; and academic Guy Cuthbertson tells how post-WW1 Britain was soothed by Agatha Christie. Find out more about this episode at http://theallusionist.org/convalescence. The Allusionist live tour comes to the US, Canada, Britain and Ireland during autumn 2018: live show listings are at http://theallusionist.org/events. If your town is not listed, check back soon, because more gigs will soon be added. The Allusionist’s online home is http://theallusionist.org. Stay in touch at http://twitter.com/allusionistshow and http://facebook.com/allusionistshow. The Allusionist is a proud member of Radiotopia from PRX, a collective of the best podcasts on the interwaves. Hear all the shows at http://radiotopia.fm. Thanks to today’s sponsors, Squarespace and Audible. Design your own website using Squarespace: try it out at squarespace.com/allusion, then use the offer code ALLUSION for a 10% discount off your first purchase of a website or domain. Audible has a huge library of audiobooks, including many classics of convalescence literature. Listeners in the USA can get a free audiobook by taking out a thirty-day trial at audible.com/allusionist, or by texting ALLUSIONIST to 500500.

Cognitive behavior therapist Dr. Jane Gregory joins Matt and Andy to talk about her work and how she helps people suffering from anxiety, post-traumatic stress disorder, obsessive-compulsive disorder and more, along with her fantastic blog Cognitive Behave Yourself in which she puts her money where her mouth is and subjects herself to some of the techniques that she asks her patients to use.

Sometimes words can become your worst enemy. Clinical psychologist Jane Gregory tells how to defuse their power. There’s more about this episode at http://theallusionist.org/behave-rerun. The main part of this episode is a rerun, but there’s new material as well – get ready for a thrill-ride into medieval accounting technology. Stay in touch at http://twitter.com/allusionistshow and http://facebook.com/allusionistshow. The Allusionist is a proud member of Radiotopia.fm for PRX.org. Join us for Radiotopia’s live tour of west coast cities this May – http://radiotopia.fm

Cognitive Behavior Therapist, Jane Gregory, talks about testing your instincts, mindfulness, and the fact positive affirmations don’t actually work.Janes Blog:http://cognitivebehaveyourself.com/Practice:http://www.hampsteadcbt.com/

Sometimes words can become your worst enemy. Clinical psychologist Jane Gregory tells how to defuse their power. There’s more about this episode at http://theallusionist.org/behave. This episode concerns mental health, and the discussion nudges some topics which may not be comfortable for everybody. Stay in touch! Tweet @allusionistshow, and convene at facebook.com/allusionistshow. The Allusionist is a proud member of Radiotopia.fm for PRX.org.

Sat, 09 Jun 12 12:00:00 +0000 Alistair & Jane Gregory http://www.kingschurchlewes.org/sites/default/files/sermons/plumpton-saturday-seminar-parenting.mp3

Sat, 09 Jun 12 13:00:00 +0100 Alistair & Jane Gregory http://www.kingschurchlewes.org/default/files/sermons/plumpton-saturday-seminar-parenting.mp3

Thu, 07 Jun 12 13:00:00 +0100 Alistair & Jane Gregory http://www.kingschurchlewes.org/default/files/sermons/plumpton_thursday_seminar_marriage.mp3

Thu, 07 Jun 12 12:00:00 +0000 Alistair & Jane Gregory http://www.kingschurchlewes.org/sites/default/files/sermons/plumpton_thursday_seminar_marriage.mp3

Jane Gregory, Martin Robins and John Naughton come together for an hour session answering questions on the future of science communication.

Tim Dutta of The Dutta Corporation explains what’s involved with flying equines around the world from Shetland Ponies to Olympic Champions. Richard Davison pays tribute to Jane Gregory. Heather Blitz is back in the co-host chair, listen in.Support the show (https://www.patreon.com/user?u=87421)

Star Wars In the Shadows. On this special mini waffle on i talk about a fantastic new audio drama coming out soon called Star wars in The Shadows, it is written, directed and produced by Dany Pépin (37y/o) a French-Canadian born in Quebec, now living in Ottawa, Ontario. SWITS is Dany’s first original story of any type in his second language (English) and only second audio drama project following the surprising adaptation of Karen Traviss’ short story Omega Squad: Targets. Dany was mostly known in Star Wars fandom by his implication in the French community and his Star Wars radio show Star Wars en Direct, both in French (since 2001) and English (2003-2006). SWITS is a classic Star Wars space opera not unlike “A New Hope”. I would describe it as a light fugitive/adventure type of story with some mature theme inserted within. SWITS has obviously been inspired by the Star Wars movies but also its Expanded Universe (EU) like the media giant Shadows of the Empire and The Force Unleashed. There are many small EU references that will appeal to the fans of the genre, but most importantly the participation of Darth Vader, Emperor Palpatine, Xizor, Guri and Mon Mothma in the actual story plot. head to www.creativeaudioscape.com for more info. John Ryan. Cartoonist John Ryan, creator of the Captain Pugwash TV series, has died in hospital in Rye, East Sussex, aged 88. The BBC commissioned the first series in 1957 after spotting potential in Ryan's books about the tales of Pugwash and his nemesis Cut Throat Jake. His agent, Jane Gregory, said there was "a huge amount of love" for the childish pirate and his shipmates, who included Tom the Cabin Boy and Willy. Captain Horatio Pugwash was created in 1950 while Ryan was an art teacher at Harrow School, shortly after he got married to fellow artist Priscilla. It was published, in the same year, in the first edition of the Eagle comic. A book deal followed, before it was adapted for TV by the BBC in 1957, with black-and-white episodes being made until 1967. Colour episodes were shown on the BBC in a mid-1970s revival. Ms Gregory told BBC News he was "always enthusiastic, always charming". "A lot of the character of Captain Pugwash was John, which is probably why we loved him as much. We devote this mini waffle on to the memory of John Ryan.