Podcasts about project sleep

Welcome back to the Law School Toolbox podcast! This is the second part of our conversation with sleep and productivity expert Lindsay Scola. In last week's episode, we discussed why sleep is important and what can mess it up, and today we look at some common (and less common) sleep disorders. If you're struggling to get the sleep you need to perform at your best, don't miss these episodes! In this episode we discuss: Understanding sleep disorders Common signs and symptoms of sleep disorders The relationship between sleep disorders and ADHD Advocating for your sleep health Practical tips for better sleep Resources LindsayScola.com (https://www.lindsayscola.com/) LinkedIn: Lindsay Scola (https://www.linkedin.com/in/lindsay-scola/) Instagram: Lindsay Scola (https://www.instagram.com/lindsay.scola/) Project Sleep (https://project-sleep.com/) Let's Talk About Sleep (https://lawschooltoolbox.com/lets-talk-about-sleep/) The Importance of Sleep in Law School (https://lawschooltoolbox.com/the-importance-of-sleep-in-law-school/) How to Maximize Your Sleep (https://lawschooltoolbox.com/how-to-maximize-your-sleep/) Download the Transcript  (https://lawschooltoolbox.com/episode-499-tips-for-better-rest-with-sleep-expert-lindsay-scola-part-2/) If you enjoy the podcast, we'd love a nice review and/or rating on Apple Podcasts (https://itunes.apple.com/us/podcast/law-school-toolbox-podcast/id1027603976) or your favorite listening app. And feel free to reach out to us directly. You can always reach us via the contact form on the Law School Toolbox website (http://lawschooltoolbox.com/contact). If you're concerned about the bar exam, check out our sister site, the Bar Exam Toolbox (http://barexamtoolbox.com/). You can also sign up for our weekly podcast newsletter (https://lawschooltoolbox.com/get-law-school-podcast-updates/) to make sure you never miss an episode! Thanks for listening! Alison & Lee

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, Julie Flygare, JD, president and chief executive officer of Project Sleep, shared her personal and professional insights into the critical role of social connections for patients living with narcolepsy and idiopathic hypersomnia. Drawing from her journey with narcolepsy, Flygare highlighted the challenges of isolation at diagnosis and the transformative power of peer support and advocacy. She delved into survey findings that underscore the rarity of social connections among patients and their impact on adjustment and well-being. Additionally, Flygare offered actionable recommendations for clinicians to integrate social support into practice, emphasizing the value of patient advocacy organizations and fostering meaningful connections. Above all, her inspiring perspective shed light on the intersection of community, research, and clinical care in sleep health. Looking for more narcolepsy discussion? Check out the NeurologyLive® Narcolepsy clinical focus page. Episode Breakdown: 1:00 – Challenges and importance of social connections 5:45 – Building a thriving community and research impact 7:30 – Insights from patient surveys on social support 10:30 – Neurology News Minute 12:25 – Recommendations for clinicians on social support The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: FDA Approves Mirdametinib for NF1-Associated Plexiform Neurofibromas in Adults and Children FDA Approves Tablet Formulation of Risdiplam for Spinal Muscular Atrophy Solid Reports Positive Data for SGT-003 Gene Therapy in Phase 1/2 Trial of Duchenne Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

Emma gives an update on her upcoming Sleep Apnea Squad session on "Making CPAP Comfortable."Sign up for email about all of Emma's sleep apnea resources she is developing at Project Sleep, click here:https://projectsleep.salsalabs.org/sleepapneasquad/index.htmlRead more about it here:https://project-sleep.com/sleep-apnea-squad-making-cpap-comfortable/To set a reminder or join live at 2 pm ET on Tuesday 11th February, click here:https://www.youtube.com/live/bW80v00fyBg?feature=shared

Dr Eidn Mahmoudzadeh is an NHS Doctor and Sleep Specialist with over 20 years of clinical experience. He's the Co-Founder of The Sleep Project, “an organisation he set up with other clinicians to try to bring sleep education to the masses, whilst providing structured programmes to improve the sleep of both adults and children.” I talk to him about: - The one thing you can do to improve your sleep - Whether supplements are effective for improving sleep - Why it might be OK for you to be watching screens before bed - Why you shouldn't stress about being part of the “5am Club” - The link between sleep and mental health - & much more https://www.thesleepproject.life/ https://www.instagram.com/the_sleep_project/ https://www.youtube.com/@the_sleep_project https://www.linkedin.com/company/the-sleep-project-en Listeners also loved these episodes: #130 | Solo Episode | Life goals, clarity, cringe & more - https://theinsightpodcast.com/s130 #125 | The Truth About Exercise & Mental Health | Dr Brendon Stubbs - https://theinsightpodcast.com/s125 #111 | Dating in 2024, how to find real connection, honest self-reflection & more | Eimear Draper - https://theinsightpodcast.com/s125 Connect with me: https://theinsightpodcast.com https://www.twitter.com/samuelcwhart https://www.instagram.com/samuelcwhart https://www.facebook.com/samuelcwhart

I am joined in this exploration of narcolepsy by Julie Flygare, an internationally recognized patient-perspective leader, and an accomplished advocate, to discuss her patient perspective of the disease as narrated in her award-winning memoir, Wide Wake and Dreaming. Julie has advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Our conversation explored Julie's onset of narcolepsy with excessive sleepiness long before she was diagnosed with narcolepsy after she developed cataplexy. She discussed her on-going struggles with the diverse symptoms of the disease, as well as here validating investigations, and indispensable medical treatments. Our conversation also covered what her diagnosis has taught her regarding prioritising time and appreciating the moment. Prior to accepting her current role as President & CEO of Project Sleep, Julie Flygare served as President of Project Sleep's Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Julie served on the National Institutes of Health's Sleep Disorders Research Advisory Board from 2012 – 2015, and she delivered the TEDx Talk, “What Can You Learn from a Professional Dreamer? on March 22, 2022,

Emma Cooksey is joined by Dr. Anne Marie Morse and Matthew Allard, the hosts of "Sleep Around The Podcast". In this episode: * Dr. Morse explains how her mother's experience living with multiple sclerosis encouraged her to pursue a career in medicine and specifically neurology. * Matthew shares his experience of supporting his wife and child through their journeys to diagnosis with obstructive sleep apnea. * Matthew shares his background working in CPAP therapy and then transitioning to working with Somnomed building relationships between sleep physicians and dentists specializing in dental sleep medicine. * Anne explains how doctors are often not exposed to oral appliances as a treatment option for patients with obstructive sleep apnea. * Matthew on how he met Anne at SLEEP 2022 and was blown away by her presentation. * Deciding to co-host "Sleeping Around The Podcast" together. * Anne explains how she learned more about oral appliances and is getting opportunities to speak at dental sleep medicine conferences. * Issues patients with obstructive sleep apnea are facing when trying to access oral appliance therapy. Emma shares her experience as a patient, Matthew explains what happens when the relationships between doctors and dentists work well and Anne explains medical insurance reimbursement issues patients and doctors face. * Dr. Morse shares her take on CPAP compliance and the infuriating situation patient and social media personality Tre Burge found himself in when his CPAP was taken away. * Anne mentions Amy Sawyer's work on CPAP adherence and programs like MonitAir to improve the patient experience with CPAP. * Teaming up with Neurology Live on the podcast. * Anne explains her recently launched Sleep Wake Advisor Institute - https://www.mycme.com/pages/sleep-wake-advisor-institute-free-cme Connect with Dr. Anne Marie Morse: https://www.dammgoodsleep.com/ https://www.instagram.com/dammgoodsleep/ https://www.mycme.com/pages/sleep-wake-advisor-institute-free-cme Connect with Matthew Allard: https://somnomed.com/en/ https://somnomed.com/en/find-a-dental-sleep-medicine-expert/ Sleeping Around The Podcast Website: https://www.sleepingaroundthepodcast.com/ YouTube: https://www.youtube.com/@SleepingAroundThePodcast?sub_confirmation=1 IG: https://www.instagram.com/sleepingaroundthepodcast LinkedIn: https://www.linkedin.com/in/sleeping-around-11a4bb293/ TikTok: https://www.tiktok.com/@sleepingaroundthepodcast Audio Pod: https://podcasts.apple.com/us/podcast/sleeping-around-the-podcast/id1589079877 FB: https://www.facebook.com/sleepingaroundthepodcast Connect with Emma:⁠⁠⁠ Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ https://www.instagram.com/sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠sleepapneastories@gmail.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ https://www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Mentioned in the episode: Tre Burge - Educator and Designer - https://www.instagram.com/hefallsasleepshop/ Rachel Nesmith - Artist and Musician - https://www.instagram.com/thenapcave/ Amy Sawyer is the researcher Dr. Morse referred to on CPAP adherence. https://pubmed.ncbi.nlm.nih.gov/21652236/ The American Sleep Apnea Association's program where CPAP machines and supplies can be donated. https://www.sleephealth.org/asaa/cpap-machine-donation/ Project Sleep's Helpline: https://project-sleep.com/helpline/ Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey Click here: ⁠⁠⁠⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country. Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment. --- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support

Emma is joined by Bijo Sebastian, a father of three who lives between India and France. In this episode: * Bijo explains how he fell asleep at the wheel with his wife and 3 kids in the car. * A polysomnogram shows severe sleep apnea with an AHI in the 50s. * Starting CPAP therapy and Bijo's kids naming the machine and reminding him to pack it every time he traveled. * Bijo explains how his mental health was impacted by his poor sleep and affected his relationship with his wife. * Leaving his marriage and moving back to India to get help with the help of a cousin. * Bijo describes taking an additional sleep study showing no improvement in his sleep apnea and another diagnosis of restless legs syndrome. * How working with different specialists helped Bijo to improve his mental health and his sleep. * The septoplasty that enabled Bijo to breathe properly through his nose for the first time. Episode Sponsor This episode is sponsored by Aeroflow Sleep - learn more here: ⁠https://www.aeroflowsleep.com⁠ Connect with Emma: Get on the email list ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠ Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠sleepapneastories@gmail.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Project Sleep's Rising Voices Program: https://project-sleep.com/rising-voices/ Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users. Click here: ⁠⁠⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country. Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment. --- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support

Emma is joined by Dr. Pam Sheets, a retired doctor who embarked upon a palate expansion called the 'EASE' procedure with Dr. Kasey Li. Pam was able to completely cure her sleep apnea following her procedure. In this episode: * Pam noticed that she was very tired a lot of the time and had nasal congestion. * Stereotypes playing into Pam's thinking that she could not possibly have sleep apnea as a petite otherwise healthy woman. * Orthodontic extractions and retractive braces and headgear Pam wore 24/7 for over a year as a teen. * Pam describes reading James Nestor's book "Breath" and "Jaws" by Sandra Kahn on the link between jaw development and sleep-disordered breathing. * Seeing an airway dentist and an orthodontist who specialized in airway issues. * Pam describes having a sleep study showing she had sleep apnea and consulting doctors using telemedicine. * Pam describes how her orthodontist recommended a surgical solution with an oral and maxillofacial surgeon. * Starting CPAP treatment in the meantime while considering surgical options. * Reasons Pam chose the EASE procedure with Dr. Kasey Li. * Pam explains the EASE protocol in detail. Dr. Kasey Li's website Pam's surgeon discussed in this episode: https://drkaseyli.org/ease/ Pam's orthodontist: Dr. Rebecca Bockow https://www.inspiredortho.com https://www.instagram.com/inspiredortho Connect with Emma: Get on the email list ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠ Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Watch conversations on YouTube: ⁠https://www.youtube.com/@sleepapneastories⁠ Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠sleepapneastories@gmail.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ To learn more about upcoming Project Sleep events, visit: ⁠https://project-sleep.com/⁠ Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users. Click here: ⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠ in the US or search your Amazon store for the title in your country. Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment. --- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support

Emma is joined by Dr. Steven Park, author of "Sleep, Interrupted" and host of the 'Breathe Better, Sleep Better, Live Better' podcast. In this episode: * Dr. Park's personal experience with sleep-disordered breathing and how that informed his work. * How improving nasal patency through nasal surgery can improve CPAP use. * Dr. Park explains why he recommends people to stop eating in the 3 hours before bedtime. * Mouth-taping and how it can help people with sleep apnea. * Upper Airway Resistance Syndrome and the patients who don't meet the criteria for sleep apnea but have significant symptoms. * The problems with the current healthcare system especially for pregnant women. * The low number of patients who are still using CPAP after a year. * Dr. Park shares about the book he is currently working on. Connect with Dr. Park: https://doctorstevenpark.com/ https://www.youtube.com/@doctorstevenpark Connect with Emma: Get on the email list ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠ Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Watch conversations on YouTube: https://www.youtube.com/@sleepapneastories Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠sleepapneastories@gmail.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ To learn more about upcoming Project Sleep events, visit: https://project-sleep.com/ Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users. Click here: ⁠⁠https://a.co/d/1KUzY0O⁠⁠ in the US or search your Amazon store for the title in your country. Survey for Patients Affected by the Philips CPAP Recall: ⁠https://survey.ucalgary.ca/jfe/form/SV_5aQkIgvUSP0SHBk?Q_CHL=qr⁠ ResMed Product Research Panel ResMed is currently looking to recruit patients diagnosed with Obesity Hypoventilation, COPD, Neuromuscular Diseases and who are being treated with NIV (regardless of the brand). Click this link to participate: ⁠⁠https://resmed1.qualtrics.com/jfe/form/SV_3WSCJHxVKWu6sPc?Referer=Outreach1⁠⁠ Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment. --- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support

Emma is joined by Rachel Nesmith, a patient advocate with narcolepsy type 1 (narcolepsy with cataplexy) and sleep apnea. In this episode: * Rachel shares her journey to diagnosis with narcolepsy type 1. * The importance of advocating for yourself in healthcare settings. * Rachel describes finding sleep specialist Dr. Anne Marie Morse D.O. and being so grateful to find a provider who was so patient-centered in her approach. * Rachel talks about completing the Project Sleep "Rising Voices" speaker training program. Connect with Rachel: https://www.instagram.com/thenapcave https://www.facebook.com/SleepyAmerican/ https://www.youtube.com/@SleepyAmerican Connect with Emma: Get on the email list ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠ Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠sleepapneastories@gmail.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠ Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Click here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country. Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment. --- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support

In today's episode, Brittny chats with Julie Flygare, JD. Julie serves as President & CEO of Project Sleep. Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals about the importance of sleep health, sleep equity, and sleep disorders. Project Sleep educates and empowers individuals using events, campaigns, and programs to bring people together and talk about sleep as a pillar of health. Julie is also an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Links:Project Sleephttps://project-sleep.com/Sleep Helplinehttps://project-sleep.com/helpline

Dr. Funke Afolabi-Brown joins us to discuss the BIG and important topic of children & sleep. Dr. Brown shares her personal journey with sleep deprivation and insomnia, which fueled her passion for helping others improve their sleep.We delve into parents' challenges when their children have trouble sleeping and explore practical strategies for improving children's sleep habits. We also learn about the impact of sleep on children's cognitive function, behavior, and growth.In addition, we discuss the diagnosis and treatment of sleep apnea in children, including adenotonsillectomy, CPAP therapy, and other treatment options.Take advantage of this informative episode filled with valuable information for parents and anyone interested in optimizing sleep for children. BIO:Dr. Funke Afolabi-Brown is a triple-board-certified sleep medicine physician passionate about helping people discover the gift of sleep as a superpower. Dr. Brown is a speaker, coach, educator, writer, and the founder of RestfulSleepMD, where she helps busy professional women and their children prioritize sleep to achieve their optimal health and thrive and live to their fullest potential. As a physician in practice for over a decade, and a mom of two who struggled with sleep issues, she fully understands the impact of sleep deprivation on our mental, physical and emotional health. As a result, she has dedicated her career to helping professional women be their best selves. She is a member of the American Academy of Sleep Medicine, The American Academy of Pediatrics, and The American Thoracic Society. She is also on the medical advisory board of Baby Center and the expert advisory board of Project Sleep.  SHOW NOTES: 

A healthy sleep pattern is vital for our physical, mental, and emotional well-being. When we consistently get enough high-quality sleep, we experience improved cognitive function, enhanced memory, and better concentration. It also supports a healthy immune system, promotes physical recovery, and helps regulate our hormones. Conversely, inadequate sleep can have profound effects on our mental health and weight management. Sleep deprivation can lead to increased levels of stress, anxiety, and depression. It affects our emotional regulation and can contribute to mood disorders. Additionally, inadequate sleep disrupts the hormones responsible for appetite regulation, often leading to increased cravings for unhealthy food and weight gain. Listen in to this episode as I talk with Funke Afolabi-Brown, MD, a triple board-certified sleep medicine physician, about the importance of sleep, common misconceptions of sleep, tips for getting optimized sleep, harnessing sleep as a superpower, and recognizing the immense potential that lies within a good night's rest.  We'll discuss things like optimizing sleep habits by establishing a consistent sleep schedule, why it's helpful to establish a bedtime routine that signals to your body that it's time to unwind, the different stages of sleep and their significance, how watching TV in bed and taking naps can impact sleep, and sleep aids like melatonin.Dr. Brown is a speaker, coach, educator, writer, and the founder of RestfulSleepMD, where she helps busy professionals and organizations prioritize sleep to achieve their optimal health and thrive and live to their fullest potential. As a physician in practice for over a decade and a mom of two who struggled with sleep issues, she fully understands the impact of sleep deprivation on our mental, physical and emotional health. As a result, she has dedicated her career to helping professional women be their best selves. She does this through speaking, coaching, workshops, courses, and programs focused on educating and empowering busy professional women to make sleep a priority as a critical pillar of their health.She is a member of the American Academy of Sleep Medicine and The American Thoracic Society. She is also on the medical advisory board of Baby Center and the expert advisory board of Project Sleep. Links :Website: https://www.restfulsleepmd.comSocial media: IG: @retfulsleepmdYouTube: https://youtube.com/@DrFunkeBrown Connect with Marianne:Website: Message In The Middle with MarianneMessage In the Middle Facebook Group: https://www.facebook.com/groups/422430469323847/Email: Contact | Message In The Middle with Marianne

Sleep is essential to our health and well-being, but millions of Americans have chronic or ongoing sleep disorders. With over 80 different sleep disorders in existence, it's important that we all increase our sleep education and build more awareness in our communities. On this episode, Deloitte Chief Well-being Officer, Jen Fisher, talks with Lindsay Scola, speaker, writer, and part of the Rising Voices of Narcolepsy program at Project Sleep, about her narcolepsy diagnosis journey, and on expanding conversations around patient advocacy and sleep disorders.

Sleep is essential to our health and well-being, but millions of Americans have chronic or ongoing sleep disorders. With over 80 different sleep disorders in existence, it's important that we all increase our sleep education and build more awareness in our communities. On this episode, Jen Fisher, talks with Lindsay Scola, speaker, writer, and part of the Rising Voices of Narcolepsy program at Project Sleep, about her narcolepsy diagnosis journey, and on expanding conversations around patient advocacy and sleep disorders.

In this episode of The Fuel Run Recover Podcast, I'm sitting down with Dr. Funke Afolabi-Brown, The Restful Sleep MD, to talk about the importance of sleep for runners! Funke Afolabi-Brown, MD, is a triple board-certified sleep medicine physician. She is passionate about helping people discover sleep as their superpower. Dr. Brown is a speaker, coach, educator, writer, and the founder of RestfulSleepMD, where she helps busy professionals and organizations prioritize sleep to achieve optimal health, thrive, and live to their fullest potential. As a physician in practice for over a decade, and a mom of two who struggled with sleep issues, she fully understands the impact of sleep deprivation on our mental, physical and emotional health. As a result, she has dedicated her career to helping professional women be their best selves.  She does this through speaking, coaching, workshops, courses, and programs focused on educating and empowering busy professional women to make sleep a priority as a a critical pillar of their health.  She is a member of the American Academy of Sleep Medicine and The American Thoracic Society. She is also on the medical advisory board of Baby Center and the expert advisory board of Project Sleep.  She is a frequent speaker at conferences, summits, workshops, and association meetings nationally and internationally.  Dr. Brown obtained her sleep medicine training at the University of Pennsylvania.  Find her at www.restfulsleepmd.com, on Instagram at @restfulsleepmd, and on YouTube at http://youtube.com/@DrFunkeBrown. Join the Black Friday waitlist for your exclusive offers ⁠here!⁠ And don't forget to grab your copy of my free Fueling and Strength Training Guides for Runners by clicking here!

Emma is joined by Trent and Theresa Tidball to discuss Trent's journey with OSA. Together they discuss: * Trent's symptoms of daytime sleepiness as a teen and doing a sleep study but not following up. * Undergoing a UPPP, tonsillectomy, septoplasty, and turbinate reduction at the same time with an ENT without ever having a sleep study. * Getting a sleep test and diagnosis of obstructive sleep apnea. * Titrating study showing the need for ASV rather than CPAP or BiPAP. * MMA surgery to advance jaws hoping to improve Trent's airway. * Mental health impacts setting in for Trent and Theresa after trying all these treatment options without a positive outcome. * Theresa starting a blog to help process the emotions around coping with Trent's illness. * Trent having a DISE procedure showing his tongue was the main reason for his obstructive apneas * Trent undergoing Hypoglossal Nerve Stimulation surgery and starting to dream again. * Speculating that UPPP surgery had affected the function of Trent's tongue. * Deciding to do a revision MMA surgery with a new surgeon. Connect with Trent and Theresa: Instagram @sleepily_everafter sleepilyeverafterblog.com https://gofund.me/c899511d This episode is sponsored by: BetterHelp⁠⁠ https://www.betterhelp.com/emma⁠⁠ for 10% off your first month of online therapy Sleeplay - click ⁠here⁠ to order CPAPs and CPAP supplies and use code ⁠BEDTIME10⁠ for 10% off. Follow the podcast on Instagram:⁠⁠ @sleepapneastories⁠⁠ Email Emma at ⁠sleepapneastories@gmail.com⁠ ⁠⁠www.sleepapneastories.com⁠⁠ Check out Gary Knight's Story Sharing on Project Sleep's Facebook Live, hosted by Emma - click here to watch! NEW! Support the Podcast! If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly. ⁠https://podcasters.spotify.com/pod/show/emma-cooksey⁠ Click "Support this Podcast". Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment. --- Support this podcast: https://podcasters.spotify.com/pod/show/emma-cooksey/support

GUEST BIO: Emma Cooksey is a podcast host and writer.  She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health problems.  Once diagnosed, she felt alone while navigating life with sleep apnea and adjusting to CPAP therapy.  In 2020, Emma began hosting a weekly podcast, “Sleep Apnea Stories.”  By sharing her journey and encouraging others to tell their stories, Emma has been breaking down stereotypes of sleep apnea while also raising awareness of symptoms and treatment options.  As a board member at Project Sleep, a 501(3)(c) nonprofit, Emma works to raise awareness about sleep health and sleep disorders. SHOW NOTES: 

How much light did you get today? In this fascinating episode, we speak with Dr. Till Roenneberg, a Professor of Chronobiology for the Institute of Medical Psychology at Ludwig-Maximilian University in Munich, Germany. Dr. Roenneberg explains how powerful light and darkness are in setting our internal clocks and how industrialization has shifted how we use light. We discuss how variable our internal clocks can be and the importance of figuring out if you’re a lark, owl, dove, or peacock. This discussion was originally recorded as part of Project Sleep's annual Sleep In 2021 event in March 2021. Learn more: https://project-sleep.com/sleepin/

When talking about creating a healthy sleep environment, we often assume that things like light, temperature, safety, and our sleep schedules are all within our personal control. In this episode, Dr. Dayna Johnson talks about important and under-discussed factors influencing people’s ability to get a good night’s sleep and how policies can shape our individual behaviors, sleep, and overall health. Dr. Dayna Johnson, PhD, is an Assistant Professor of Epidemiology at Rollins School of Public Health at Emory University in Atlanta, Georgia. Dr. Johnson’s research has uncovered much about the social contributors to racial and gender disparities in sleep by assessing the effects of social, household-level and neighborhood-level factors in correlation with insufficient sleep. This discussion was originally recorded as part of Project Sleep's annual Sleep In 2021 event in March 2021. Learn more: https://project-sleep.com/sleepin/

Emma is joined by Dr. Keith Matheny M.D., an ENT surgeon specializing in Rhinology and Sleep. Together they discuss: * How the current healthcare system is failing so many patients with obstructive sleep apnea. * The importance of looking at the nose when treating sleep apnea. * Insurance issues patients come across when trying to get nasal surgeries covered when they have OSA. * How Dr. Matheny has partnered with a dentist within his practice to offer oral appliance therapy to his patients. * The need for more collaboration among providers of different specialties when treating OSA. * The NasoClenz study Dr. Matheny is conducting which so far has shown an improvement in comfort for his CPAP patients. * Implementing Remote Patient Monitoring to track the progress of OSA patients. * Surgeries available to OSA patients, including the Inspire implant, tonsilectomy, soft palate stiffening, turbinate reduction, septoplasty and nasal valve surgery. For more on Dr. Matheny's work, follow these links: www.usent.com www.septumsolutions.com www.sleepvigil.com www.tufflinks.com www.collincountyent.com This episode is sponsored by: BetterHelp https://www.betterhelp.com/emma for 10% off your first month of online therapy Discount codes for listeners: Save 20% on the Kewaba "Cloud" pillow here: https://www.kewaba.com/sleepapneastories and use code "20SLEEPAPNEA" at checkout. To try the "NasoClenz product discussed in the episode, click here: www.nasoclenz.com Receive 10% off the Home and Travel Collection - Use Code: Naso4sleepapnea PLUS Free Shipping off All Orders, Use Code: FREESHIPPING Follow the podcast on Instagram: @sleepapneastories Email Emma at sleepapneastories@gmail.com www.sleepapneastories.com If you are living with a diagnosed sleep disorder, please consider completing Project Sleep's "Rising Voices" patient advocate speaker training program. You can use your own story to raise much-needed awareness in your community. Apply here: https://project-sleep.com/2023-rising-voices-applications/ Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices. This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

What is the connection between sleep, race, ethnicity, and health disparities? What is being done to reduce these disparities? In this episode, Dr. Michael Grandner provides an overview of sleep health disparities research. Next, Dr. Carmela Alcántara highlights a community engagement sleep intervention in the Spanish-speaking LatinX population. Dr. Michael Grandner is a licensed clinical psychologist, Director of the Sleep and Health Research Program at the University of Arizona, and Director of the Behavioral Sleep Medicine Clinic at the Banner-University Medical Center in Tucson, AZ. His work focuses on translational sleep research and Behavioral Sleep Medicine. Dr. Carmela Alcántara is an Associate Professor of Social Work at Columbia School of Social Work. She is a clinical psychological scientist with additional expertise in social epidemiology and behavioral medicine. This discussion was recorded in October 2020, during Project Sleep’s Sleep Advocacy Forum. Learn more: project-sleep.com/watch-now-highlights-from-inaugural-sleep-advocacy-forum-2020/

What a great interview this was! Yes, your mother was right: you have to sleep! But why is it so important for our health and what can we do to improve our sleep quality and quantity? Listen to this episode of UnabridgedMD and learn from sleep expert Dr Funke BrownDr. Funke Afolabi-Brown is a triple-board-certified sleep medicine physician passionate about helping people discover the gift of sleep as a superpower. Dr. Brown is a speaker, coach, educator, writer, and the founder of RestfulSleepMD, where she helps busy professional women and their children prioritize sleep to achieve their optimal health and thrive and live to their fullest potential. As a physician in practice for over a decade, and a mom of two who struggled with sleep issues, she fully understands the impact of sleep deprivation on our mental, physical and emotional health. As a result, she has dedicated her career to helping professional women be their best selves. She does this through speaking, coaching, courses, and programs focused on educating and empowering busy professional women to make sleep a priority as a critical pillar of their health.She is a member of the American Academy of Sleep Medicine, The American Academy of Pediatrics, and The American Thoracic Society. She is also on the medical advisory board of Baby Center and the expert advisory board of Project Sleep. She is a frequent speaker at conferences, summits, workshops, and association meetings nationally and internationally. Website: https://www.restfulsleepmd.com/Email: drbrown@restfulsleepmd.comSocial media: IG @restfulsleepmdYoutube: www.youtube.com/c/DrFunkeBrown/_____________________As always, please share this episode with one of your friends you know will learn from this. We look forward to serving you and your loved ones at https://www.UnabridgedMD.com. We are now accepting new patients in our rheumatology practice! Please reach out to info@unabridgedmd.com so we can put you on Dr Amigues' schedule. If you live in Colorado and are looking for a rheumatologist to help you achieve disease remission, email or contact us at UnabridgedMD.com. We are the first direct care rheumatology in Colorado and can see you within a week!

If you’ve ever spent time around teenagers, you probably know that many teens are struggling with sleep. In fact, nearly 70 percent of high school students sleep less than the recommended 8-9 hours a night. In this podcast, we talk to Dr. Funke Afolabi-Brown about how we can make sleep cool to teens and their parents too! Dr. Afolabi-Brown is board-certified in pediatric pulmonary medicine and pediatric sleep disorders. As a double board-certified pediatric respiratory sleep medicine physician, Dr. Brown helps her patients breathe better and sleep better. By extension, she helps improve the sleep of their parents. Dr. Brown is a speaker, an educator, a writer, and the founder of Restful Sleep MD and also a member of Project Sleep's Expert Advisory Board. Find her on Instagram: @restfulsleepmd or her website: https://www.restfulsleepmd.com/ This conversation was recorded in March 2022, during Project Sleep’s annual Sleep In event to help society make peace with sleep. Learn more: https://project-sleep.com/sleepin/

A Time For Reflection - Welcome to the 20th episode of ‘Run The Business'. Since we launched the podcast earlier in 2022, we have had some incredible guests join our host, Ant, to talk about the parallels between running and leadership. In this episode, we take a moment to reflect on the insights they have shared when asked ‘what advice would you give to anyone in business or a leadership role considering getting more active and specifically taking up running?'Featured in this episode: Jason Fitzgerald, Founder, Strength RunningMike Seaman, CEO, Raccoon Media Jenni Falconer, Co-Founder, Kollo HealthLewis Reeves, CEO & Founder, WalrJulie Flygare, CEO Project Sleep,Jakob Bloch, CEO, Commodity GlobalKerin Hempel, CEO, New York Road RunnersDan Stanley, CEO, Better MenJo Sopala, CEO, British Society of Echocardiology Andy Baddeley, CEO, The Running ChannelGordon Tredgold, CEO & Managing Consultant, Leadership Principles LLCDr Josephine Perry, Sports Psychologist & CEO Performance In Mind Geert Van Der Velde, CEO, Chessable If you've enjoyed listening to this episode, please have a listen to the full interviews with our previous guests and we'll be back in the New Year with a brand new guest. All the links:Anthony Gay Twitter - https://twitter.com/anthonygayAnthony Gay LinkedIn - https://www.linkedin.com/in/gayanthony/ Hosted on Acast. See acast.com/privacy for more information.

With sleep paralysis and hypnagogic and hypnopompic hallucinations, the lines between sleeping and waking can be blurred. In this episode, we talk with three incredible narcolepsy advocates about these underappreciated, often terrifying, and confusing symptoms and how to cope with them. About Our Guests: Chelsea Cataldi is a world traveler who enjoys creating things with her hands. She was diagnosed with type 1 narcolepsy with cataplexy in 2010 while living in Japan. As a speaker with Project Sleep’s Rising Voices program, Chelsea raises awareness to combat misperceptions about narcolepsy and let others know they’re not alone. Kistyn Beecher is a storyteller and news producer from Houston, Texas. She was diagnosed with type 2 narcolepsy without cataplexy at age 24, but lived with symptoms for many years before that. A graduate of Hampton University and Rising Voices speaker, Kristyn works daily to make sure underrepresented voices are heard and their stories shared. Connor Baker is a CDU nurse working at Rush Copley Medical Center in Aurora, Illinois. He was diagnosed with type 1 narcolepsy with cataplexy at 20 years old. Connor shares his story as a Rising Voices speaker to spread awareness and end stigmas surrounding narcolepsy. Sleep Paralysis + Hallucinations Toolkit coming soon! The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Dr. Afolabi-Brown is a triple-board-certified sleep medicine physician passionate about helping people discover the gift of sleep as a superpower.  Dr. Brown is a speaker, coach, educator, writer, and the founder of RestfulSleepMD, where she helps busy professional women and their children prioritize sleep to achieve their optimal health and thrive and live to their fullest potential.  She is a member of the American Academy of Sleep Medicine, The American Academy of Pediatrics, and The American Thoracic Society. She is also on the medical advisory board of Baby Center and the expert advisory board of Project Sleep. She is a frequent speaker at conferences, summits, workshops, and association meetings nationally and internationally. As a physician in practice for over a decade, and a mom of two who struggled with sleep issues, she fully understands the impact of sleep deprivation on our mental, physical and emotional health. As a result, she has dedicated her career to helping professional women be their best selves. She does this through speaking, coaching, courses, and programs focused on educating and empowering busy professional women to make sleep a priority as a critical pillar of their health. In this episode, Dr. Brown and I chat about:Her leadership roles Her leadership style Her leadership journey The leaders that helped her rise The challenges she faced on her journey How she navigated those challenges How she thinks you can become a strong and kind leader Her 'take home' leadership messages for the listeners, and What she is currently excited to be working on.Dr. Brown can be contacted via https://www.restfulsleepmd.com/ which has hyperlinks to her Instagram, Facebook and LinkedIn profiles and her YouTube channel.Please reach out to Dr Harrison for individual coaching and/or organisational training via dr.adam@coachingmentoringdoctors.com.His web address and social media profile links / handles include:www.dradamharrison.comhttps://www.linkedin.com/in/dradamharrison/www.youtube.com/c/DrAdamPhysicianCoachhttps://www.facebook.com/coachingmentoringdoctors/https://www.instagram.com/dradamharrison/https://www.tiktok.com/@physiciancoach

Through the ups and downs with my Sjogren's, I learned early on that sleep was critical to keeping me healthy and functioning at my best. Listen to my conversation with sleep expert Dr. Brown. Dr. Funke Afolabi-Brown is a triple board-certified sleep medicine physician passionate about helping people discover the gift of sleep as a superpower. Dr. Brown is a speaker, an educator, a writer, and the founder of RestfulSleepMD where she helps busy professional women and their children prioritize sleep to not only achieve their optimal health but also thrive and live to their fullest potential. As a physician in practice for over a decade, a mom of two, she fully understands the impact of sleep deprivation on our mental, physical and emotional health. As a result of this, she has dedicated her career to helping professional women be their best selves. She does this through speaking, coaching, courses, and programs focused on educating and empowering busy professional women to make sleep a priority as a critical pillar of their health. She is a member of the American Academy of Sleep Medicine, The American Academy of Pediatrics, and The Amerian Thoracic Society. She also on the medical advisory board of Baby Center as well as the expert advisory board of Project Sleep. She is a frequent speaker at various conferences, summits, workshops, and association meetings, both nationally and internationally. ========== Follow Dr. Brown: Website: https://www.restfulsleepmd.com/Instagram: @restfulsleepmdFacebook: funke.afolabibrownLinkedIn: https://www.linkedin.com/in/funke-afolabi-brown-a3517945/YouTube: https://www.youtube.com/channel/UCPateezmNmJ_Vrtizii5q-A ========= Watch this Episode on YouTube https://youtu.be/cBIXjs5p1w8

Show Notes: Our guest during this interview is Kenya Gradnigo, a social worker and a member of the board for Project Sleep. Kenya shared information about being diagnosed with narcolepsy as a young child and some of the lessons she's learned on how to manage life with narcolepsy. Contact Project Sleep: Kenya's Instagram: @unapologetically_ken Project Sleep Website: https://project-sleep.com Navigating College Toolkit: https://bit.ly/narcolepsyschool Connect with Us: https://linktr.ee/waterprairie Support this channel: https://www.buymeacoffee.com/waterprairie Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Students with sleep disorders have the right to an equitable education, but how do you work with your school and doctor to get accommodations? And what accommodations should you ask for? We're joined by two amazing women and Jack & Julie Narcolepsy Scholarships recipients, Kenya Gradnigo and Danielle Brooks, to discuss navigating school with narcolepsy. About Our Guests: Danielle Brooks was diagnosed with type 1 narcolepsy with cataplexy during her freshman year of high school. Danielle recently graduated with a Master of Science in communication sciences and disorders, and is now working as a school speech language pathologist. Kenya Gradnigo was diagnosed with type 1 narcolepsy with cataplexy when she was eight years old. Kenya recently secured her Master of Social Work degree and is now working in the mental health social work space. She’s also a member of Project Sleep’s board of directors. Download the Navigating School with Narcolepsy Toolkit for more resources: bit.ly/navigating-school-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Students with sleep disorders have the right to an equitable education, but how do you work with your school and doctor to get accommodations? And what accommodations should you ask for? We're joined by two amazing women and Jack & Julie Narcolepsy Scholarships recipients, Kenya Gradnigo and Danielle Brooks, to discuss navigating school with narcolepsy. About Our Guests: Danielle Brooks was diagnosed with type 1 narcolepsy with cataplexy during her freshman year of high school. Danielle recently graduated with a Master of Science in communication sciences and disorders, and is now working as a school speech language pathologist. Kenya Gradnigo was diagnosed with type 1 narcolepsy with cataplexy when she was eight years old. Kenya recently secured her Master of Social Work degree and is now working in the mental health social work space. She’s also a member of Project Sleep’s board of directors. Download the Navigating School with Narcolepsy Toolkit for more resources: bit.ly/navigating-school-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Making Sleep Cool - In this first episode of ‘Run The Business' Ant meets with Julie Flygare, CEO of ‘Project Sleep' a non-profit organization dedicated to raising awareness about sleep health, sleep equity, and sleep disorders. Julie talks to Ant about the ways in which running improves her life and how the idea for Project Sleep came to her while out on a run.As President & CEO of ‘Project Sleep' Julie is passionate about raising awareness of Narcolepsy – a neurological disorder that affects 3 million people worldwide. She is a TEDx speaker and author of ‘Wide Awake & Dreaming: A Memoir of Narcolepsy.'All the links:Anthony Gay Twitter - https://twitter.com/anthonygayAnthony Gay LinkedIn - https://www.linkedin.com/in/gayanthony/Julie Flygare Twitter - @RemRunnerJulie Flygare Insta - https://www.instagram.com/remrunner/Julie Flygare LinkedIn - https://www.linkedin.com/in/julieflygare/ https://project-sleep.com/Reel2Media Twitter - https://twitter.com/Reel2MReel2Media Insta - https://www.instagram.com/reel_2_media/ Hosted on Acast. See acast.com/privacy for more information.

Is napping an unwelcome symptom of narcolepsy or a helpful treatment? In today’s episode, we speak with Dr. Luis Ortiz and Mary Murray about how we make space for naps in our busy daytime lives, especially in a culture where sleeping is laziness or weakness. About our Guests: Luis E. Ortiz, MD is a pediatric sleep specialist at Johns Hopkins All Children’s Hospital in St. Petersburg, Florida. Living with narcolepsy himself, Dr. Ortiz offers invaluable insights from both a medical perspective and first-hand lived experience. Mary Murray is a teacher and mother living with idiopathic hypersomnia in Los Angeles, CA. Mary is also a Rising Voices of Narcolepsy advocate and her powerful essay “Nap Roulette” is published on Project Sleep’s website. Download the Napping + Narcolepsy Toolkit for more resources: bit.ly/napping-narcolepsy-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Is napping an unwelcome symptom of narcolepsy or a helpful treatment? In today’s episode, we speak with Dr. Luis Ortiz and Mary Murray about how we make space for naps in our busy daytime lives, especially in a culture where sleeping is laziness or weakness. About our Guests: Luis E. Ortiz, MD is a pediatric sleep specialist at Johns Hopkins All Children’s Hospital in St. Petersburg, Florida. Living with narcolepsy himself, Dr. Ortiz offers invaluable insights from both a medical perspective and first-hand lived experience. Mary Murray is a teacher and mother living with idiopathic hypersomnia in Los Angeles, CA. Mary is also a Rising Voices of Narcolepsy advocate and her powerful essay “Nap Roulette” is published on Project Sleep’s website. Download the Napping + Narcolepsy Toolkit for more resources: bit.ly/napping-narcolepsy-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Show Notes: Our guest during this interview is Julie Flygare, the president and CEO of Project Sleep and host of the Project Sleep podcast. Julie shared information about narcolepsy and some of the exciting things that are happening through Project Sleep. Some of the key information we discussed are the difference between type 1 narcolepsy and type 2 narcolepsy, cataplexy, current research for narcolepsy, and accommodations for students with narcolepsy. Contact Project Sleep: Website: https://project-sleep.com Podcast: https://project-sleep.com/podcast/ Pediatric Narcolepsy Survey: https://project-sleep.com/wp-content/uploads/2021/10/Pediatric-Narcolepsy-Boston.pdf Julie's Book, Wide Awake and Dreaming: A Memoir of Narcolepsy: https://amzn.to/3wgE0H4 Genetic Marker for Narcolepsy: HLA-DBQ1*06:02More information on page 11: https://project-sleep.com/wp-content/uploads/2021/09/Science-of-Narcolepsy-Toolkit.pdf Connect with Us: https://linktr.ee/waterprairie Support this channel: https://www.buymeacoffee.com/waterprairie Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

How can I get my friends and family to understand narcolepsy? It can be hard to know how to explain narcolepsy and ask for help. And even the most thoughtful friends and family members may not be sure how best to support the person with narcolepsy’s experience. We’ve enlisted two amazing narcolepsy advocates and dear friends, Lauren Thomas and Anne Taylor, to discuss this important topic. About Our Guests: Lauren Thomas is a person living with narcolepsy with cataplexy. She was diagnosed in 2019 after a long journey with misdiagnosed sleepiness. Anne Taylor is a nurse and mother of a daughter living with narcolepsy. Anne also serves on the Board of Directors for Project Sleep. Download the Friends + Family + Narcolepsy Toolkit for more resources: bit.ly/friends-family-narcolepsy-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

How can I get my friends and family to understand narcolepsy? It can be hard to know how to explain narcolepsy and ask for help. And even the most thoughtful friends and family members may not be sure how best to support the person with narcolepsy’s experience. We’ve enlisted two amazing narcolepsy advocates and dear friends, Lauren Thomas and Anne Taylor, to discuss this important topic. About Our Guests: Lauren Thomas is a person living with narcolepsy with cataplexy. She was diagnosed in 2019 after a long journey with misdiagnosed sleepiness. Anne Taylor is a nurse and mother of a daughter living with narcolepsy. Anne also serves on the Board of Directors for Project Sleep. Download the Friends + Family + Narcolepsy Toolkit for more resources: bit.ly/friends-family-narcolepsy-toolkit The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

So you’d like to advocate for narcolepsy, but aren’t sure where to start? In this episode, we are joined by two incredible narcolepsy advocates, Ana E. Lara and Matthew Horsnell. Together, we talk about the power of YOUR story and break down narcolepsy advocacy into three categories: self-advocacy, raising your voice publicly, and legislative advocacy. Ana E. Lara is a poet and stay-at-home mom who is passionate about writing. She is a person with narcolepsy, who advocates for sleep health and serves on the board of directors for Project Sleep. Matthew Horsnell is a father of three and science nerd living with type 1 narcolepsy with cataplexy. He is a Rising Voices of Narcolepsy trained speaker and a facilitator for Wake Up Narcolepsy online small groups. Download the Becoming a Narcolepsy Advocate Toolkit for more resources: https://bit.ly/becoming-a-narcolepsy-advocate The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. https://project-sleep.com/narcolepsy-nerd-alert/

So you’d like to advocate for narcolepsy, but aren’t sure where to start? In this episode, we are joined by two incredible narcolepsy advocates, Ana E. Lara and Matthew Horsnell. Together, we talk about the power of YOUR story and break down narcolepsy advocacy into three categories: self-advocacy, raising your voice publicly, and legislative advocacy. Ana E. Lara is a poet and stay-at-home mom who is passionate about writing. She is a person with narcolepsy, who advocates for sleep health and serves on the board of directors for Project Sleep. Matthew Horsnell is a father of three and science nerd living with type 1 narcolepsy with cataplexy. He is a Rising Voices of Narcolepsy trained speaker and a facilitator for Wake Up Narcolepsy online small groups. Download the Becoming a Narcolepsy Advocate Toolkit for more resources: https://bit.ly/becoming-a-narcolepsy-advocate The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. https://project-sleep.com/narcolepsy-nerd-alert/

Emma is joined by Matt Horsnell and together they discuss: * Matt's journey to a diagnosis of narcolepsy with cataplexy and how obstructive sleep apnea did show up on his original sleep test but wasn't deemed severe enough to treat. * Coping with depression and anxiety along with sleep disorders. * Getting a diagnosis with severe obstructive sleep apnea and beginning treatment with CPAP. * Matt finding ways for his sleep disorders to work for him and engaging with social support in the sleep disorders community. * Becoming involved with sleep patient awareness and advocacy and coming up with the title "the World's Strongest Man with Narcolepsy and Cataplexy". * Matt shares about the Project Sleep event he will take part in next month in Nashville. Find details here: https://project-sleep.com/events/nashville-innovations-in-narcolepsy-awareness-advocacy/ Follow Matt on Instagram: www.instagram.com/mhorsnell This episode is sponsored by Inspire https://www.inspiresleep.com/ Airway Management https://tapintosleep.com/ BetterHelp https://www.betterhelp.com/emma Follow the podcast on Instagram: @sleepapneastories Email Emma at sleepapneastories@gmail.com www.sleepapneastories.com Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Recently Emma attended the SLEEP 2022 Conference run by the Association of Professional Sleep Societies (APSS) which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS). Emma used the opportunity to interview as many people as she could. Interviews featured include: * Julie Flygare, Founder, and CEO of Project Sleep, talks about the inclusion of patient voices in conferences like SLEEP 2022. * Dr. Joshua Roland M.D., a board-certified sleep specialist, answers your questions about sleep apnea. * Dr. Chelsie Rohrscheib from Wesper discusses how monitoring your sleep with their patches can help improve your sleep quality. * Olivier Lauzeral at Somnics Health, talks about the iNAP device for treating obstructive sleep apnea. * Dr. Shelby Harris, sharing helpful sleep tips for travel. * David Baxter from SleepGlad explains his app to improve mask fit by scanning patient faces. * Nick Glattard, Co-founder and CTO at Ensodata speaks about how technology improvements in scoring sleep tests can ultimately help patients get more accurate test results. * Dr. Sam Kashani M.D., a board-certified sleep specialist, answers your questions. * Dr. Keith Thornton D.D.S., of Airway Management describes the TAP appliances he has developed to help people with snoring through to severe sleep apnea. * Mollie McGlocklin, fellow podcast host and founder of "Sleep Is A Skill", shares info on how she gets great sleep. * Drew Copeland and Teresa DeNike of Sleep Better NYC on their favorite highlights from the sleep conference. * Emma Cooksey - Drew turns the microphone on Emma to ask her a few questions! This episode is sponsored by Inspire https://www.inspiresleep.com/ Airway Management https://tapintosleep.com/ BetterHelp https://www.betterhelp.com/emma Follow the podcast on Instagram: @sleepapneastories Email Emma at sleepapneastories@gmail.com www.sleepapneastories.com Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences with medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Emma is joined by author and journalist, James Nestor. His book "Breath: The New Science of a Lost Art" was released in 2020 and became an international bestseller. In the book, James discusses how the human species has lost the ability to breathe properly - and how to get it back. Together Emma and James discuss: * Some of the issues with the current medical system and its approach to treating sleep apnea. * Getting to the root causes of sleep apnea. * Premolar extractions, braces, and headgear - how these orthodontic practices can impact growing faces and airways. * CPAP headgear pushing faces backward over time and why that's a problem. * How James has grown new bone in his face and improved his breathing using a palate expansion appliance. Connect with James, order his books or find his social media handles at https://www.mrjamesnestor.com/ You can find an excellent Q&A about sleep apnea with Dr. Steven Y. Park on James Nestor's website here: https://www.mrjamesnestor.com/faq A great article by Karin Badt on premolar extractions for orthodontic treatment: https://karinbadt.medium.com/premolar-extractions-for-orthodontic-treatment-2190344bc7bf Emma mentioned Project Sleep's Rising Voices speaker training program. We need YOUR STORY! The more people with sleep apnea we can find to share their stories, the more we can raise awareness and improve access to screening, diagnosis, and treatment. If you have sleep apnea and would like to work with Project Sleep to create a presentation you can give in your community and in the media, click here: https://project-sleep.com/2022-rising-voices-application-now-open/ This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep Special offer for Sleep Apnea Stories podcast listeners: 20% Off Bleep Sleep DreamPorts Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes: CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4 CODE FOR DREAMPORTS IS: 20EMMAPORTS THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Emma is joined by Dr. Xiaochuan Yan, a general surgeon working in China sharing his own story of being diagnosed and treated with sleep apnea. Together they discuss: * Symptoms Dr. Yan experienced for years prior to diagnosis with obstructive sleep apnea. * Lack of adequate training about sleep apnea in medical school. * Dr. Yan's life-changing diagnosis and treatment with a CPAP. * Healthcare provision and sleep apnea treatment in China. * The losing weight conundrum many people with sleep apnea struggle with. Too tired to eat well and exercise which would help their sleep apnea. * The need to raise awareness about sleep apnea and increase research funding. Contact Dr Yan by email: Docxcyan@gmail.com Follow the podcast on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma Links Emma mentioned: This weekend is Project Sleep's "Sleep In" fundraiser click here to donate: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html or find out more about the 'Sleep In' here: www.project-sleep.com Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Emma is joined by Jason Sazama, the man behind "The Lanky Lefty 27" YouTube Channel. Together they discuss: * Emma's discovery of Jason's YouTube channel and the video topics she found helpful. * Common CPAP problems and how Jason addresses them. * OSCAR software for analyzing CPAP data and what to look for. * Jason's own journey with Hashimoto's and diagnosis with obstructive sleep apnea. * The setup Jason uses at night, including his mask recommendations and cleaning routine. * Jason's background as a credentialed and experienced sleep tech. The services he provides through AXG Diagnostics are at-home sleep testing and analysis of OSCAR CPAP data over zoom. Jason on YouTube: https://www.youtube.com/c/Freecpapadvice Jason's pap therapy data analysis to help you figure out the correct settings for your CPAP: http://axgsleepdiagnostics.com/product/pap-therapy-data-analysis/ Follow the podcast on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma Links Emma mentioned: To join Emma's fundraising team for Project Sleep's "Sleep In" fundraiser click here: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html (this is also where to make a donation!). Find out more about the 'Sleep In' here: www.project-sleep.com 20% Off Bleep Sleep DreamPorts Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes: CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4 CODE FOR DREAMPORTS IS: 20EMMAPORTS THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Emma is joined by Christina Sanghera, a holistic health coach who helps burned-out women with chronic illnesses. Together they discuss: * Christina's own health journey with a thyroid condition, Hashimoto's; * How Christina felt waking up at night before her obstructive sleep apnea diagnosis; * Misdiagnosis with panic attacks and anxiety and calling 911; * Stereotypes in sleep apnea diagnosis and how they keep young women from accurate diagnoses; * The importance of working with the nervous system and especially the vagus nerve to soothe fight or flight responses. Follow Christina on Instagram: www.instagram.com/christinasanghera Follow the podcast on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma Links Emma mentioned: To join Emma's fundraising team for Project Sleep's "Sleep In" fundraiser click here: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html or find out more about the 'Sleep In' here: www.project-sleep.com Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Emma is joined by Bob Stanton, a former over the road (OTR) truck driver with experience of all the issues facing truck drivers with sleep apnea. Together they discuss: * Bob's personal journey to diagnosis with sleep apnea and his treatment with CPAP; * Federal Motor Carrier Safety Administration (FMCSA) regulations relevant to obstructive sleep apnea; * Department of Transport medical examinations required to receive and maintain a Commercial Driver's License (CDL); * Challenges facing truck drivers using CPAP, including power supply issues and humidification issues; * Political challenges with passing legislation about truck drivers with sleep apnea; * Oral Appliance Therapy (OAT) and the compliance chips that could make it accessible to truck drivers; Contact Bob at Dedicated Sleep Health & Wellness by emailing bstanton@dedicatedsleep.net Follow the podcast on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma Links Emma mentioned: To join Emma's fundraising team for Project Sleep's "Sleep In" fundraiser click here: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html or find out more about the 'Sleep In' here: www.project-sleep.com Dr Sai Parthasarathy shared this information for individuals to get peer support for sleep apnea struggles: https://www.sleepapnea.org/peer-mentors/mentees/join-asaa/ This is a PCORI funded program partnering with the American Sleep Apnea Association. There is also a web-based mentor training website here: https://sleep.uahs.arizona.edu/patients Dr Vik Veer's YouTube video about the new NICE guidelines for treating Sleep Apnea in the UK is here: https://www.youtube.com/watch?v=LNbPhogMTzM Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Julie Flygare, J.D., is a leading ambassador for narcolepsy and sleep, and a strong advocate for patient-centered research and the importance of social support. She is an accomplished speaker, Stanford Medicine X ePatient Scholar, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. As President & CEO of Project Sleep, Julie leads the organization's patient-driven advocacy, awareness, and education programs. For over a decade, she has fostered a variety of successful collaborations including bringing together 29 patient advocacy organizations to co-lead World Narcolepsy Day and launching the Sleep Advocacy Forum to elevate the sleep community's profile on the national policy stage. Julie has lectured at numerous professional meetings across the U.S. and keynoted conferences in Ireland, Italy, Sweden, Australia, and the United Kingdom. She has co-authored papers in peer-reviewed publications and authored a chapter in a narcolepsy clinical textbook. Julie received her B.A. from Brown University and her J.D. from Boston College Law School focusing on health law and rare disease drug development. Wide Awake and Dreaming: A Memoir of Narcolepsy: Julie Flygare's website: http://julieflygare.com/ Project Sleep's website: https://project-sleep.com/ Project Sleep's Instagram: @project_sleep https://www.instagram.com/project_sleep/?hl=en Project Sleep's Facebook: https://www.facebook.com/ProjectSleepAwareness Project Sleep's Twitter: @project_sleep https://twitter.com/project_sleep Project Sleep's YouTube: https://www.youtube.com/c/Project-sleep

Emma wraps up season 5 with an update about what she's working on to raise awareness about sleep apnea in 2022. In this episode she shares: * Project Sleep recently appointed Emma to its Board of Directors. Emma shares how she hopes to help Project Sleep expand its programs to include sleep apnea; * Emma is looking for people interested in joining her fundraising team for Project Sleep's "Sleep In" in March. Sign up for email below if you're interested! * Plans for the podcast in 2022. Are you interested in telling your story on the podcast? If so, email sleepapneastories@gmail.com with the subject line "podcast guest". To join the email list go here: https://www.sleepapneastories.com/emailsignup and scroll to the bottom of the page. Follow the podcast on Instagram: www.instagram.com/sleepapneastories Learn more about Project Sleep here: https://project-sleep.com/ This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

On this episode of Sh!t We Don't Talk About, Mia welcomes guest Julie Flygare of Project Sleep to talk about narcolepsy and cataplexy, two conditions we definitely do NOT talk about enough! Narcolepsy is more than just randomly falling asleep. Narcolepsy is a life-impacting neurological disorder that rarely gets described accurately and does not get the attention it requires. --- For full show notes on this episode, visit https://miavoss.live/43 Find Mia online here or here. --- Support this podcast: https://anchor.fm/miavosslive/support

Trigger warning: there is some discussion of suicidal thoughts in this episode. Patrick Zwally shares his health journey from debilitating chronic pain to life-saving double jaw surgery and jaw joint replacement. Together Patrick and Emma discuss: * Patrick's childhood including his mouth breathing and poor oral posture; * The traditional orthodontics Patrick had as a teen; * The beginning of TMJ problems, 2 shoulder surgeries and neck pain; * Patrick developing chronic pain and feeling suicidal; * Lots of people are having serious sleep problems but don't meet the official criteria for a sleep apnea diagnosis; * Patrick discovering the work of Professor John Mew and Dr Mike Mew; * Meeting with Dr Bill Hang and Dr Reza Movahed; * Double jaw surgery and jaw joint replacement and Patrick's amazing results; * Myofunctional Therapy to improve oral posture. Sarah Hornsby talking about exercises she does with Kourtney Kardashian https://youtu.be/qgUPm4Y5azk The book Patrick mentioned - Jaws: the story of a hidden epidemic Follow the podcast on Instagram: @sleepapneastories Emma's Facebook Live on the Project Sleep page October 10th at 8pm EST - click here This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

#39: In this episode, I chat with Julie Flygare, President & CEO of Project Sleep about World Narcolepsy Day 2021 (celebrated on September 22nd each year). I was diagnosed with Narcolepsy while I was a college student at Colorado State. Then in 2014, my cataplexy symptoms developed. This is a neurological condition that has so many stigmas and misinformation. I'm so grateful to Julie for the work she's doing to help people get diagnosed faster and just general awareness. To connect with Julie, click HERE To connect with Leyla, click HERE Check out Project Sleep, HERE Julie Flygare, JD, currently serves as President & CEO of Project Sleep. She is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.  Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep's Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health's Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Emma is joined by Brandon Wilds, one of the first patients to try out the eXciteOSA device for treating mild sleep apnea and snoring. Together they discuss: * Brandon coping with daytime sleepiness and seeing a sleep specialist; * Sleep studies at home and at a medical facility; * Being prescribed a CPAP and having a lot of problems with it; * Learning about a new treatment called eXciteOSA and being one of the first patients to try it; * The eXciteOSA device - what it is and how it works; * Brandon on how much better he is feeling now. Emma mentioned Project Sleep's program "Rising Voices of Narcolepsy". Sign up for updates from Project Sleep and learn more about the program here: https://project-sleep.com/rising-voices-of-narcolepsy/ This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Please note: eXciteOSA are a sponsor of this season of the "Sleep Apnea Stories" podcast but Emma had complete control over the editorial content of this interview. Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

Matthew Horsnell is a person with Type 1 Narcolepsy. He also is a multi-faceted narcolepsy advocate. He’s a speaker, a blogger, legislative advocate and narcolepsy support group leader. In this episode, Matthew and Claire discussed how becoming a dad pushed him to figure out his extreme daytime sleepiness that he dealt with throughout his childhood.  He, in his words, “passed the test with flying colors,” and was diagnosed with Type 1 Narcolepsy.  After navigating living with narcolepsy, being a parent and generally being an adult for a few years, Matthew realized he wanted to be vocal about his narcolepsy and spread narcolepsy awareness. Matthew is a generous narcolepsy advocate. He first entered into advocacy through the Know Narcolepsy awareness campaign. He participated in Project Sleep’s Rising Voices of Narcolepsy Program to help him confidently speak about living with narcolepsy. Today he advocates by speaking at events, webinars, and participating as a legislative advocate in DC. He writes blogs on Health Union about living with narcolepsy. He facilitates a weekly online support group through Wake Up Narcolepsy.  He also is an active social media advocate posting and spreading awareness with the hashtag = #worldsstrongestpersonhavingnarcolepsywithcataplexy. Matthew shares about how exercise, therapy, support groups, and connecting with the narcolepsy community have brought about a fuller life. We really appreciated Matthew’s honesty and empathy that he offers in sharing his experiences living with narcolepsy. You can follow Matthew at @mhorsnell on Instagram and  @matthorsnell on Twitter. You can read his writings about narcolepsy for Health Union here. You can watch his Rising Voices of Narcolepsy Story Sharing Event. You can also watch his presentation, "Social Support and Counseling: Navigating Narcolepsy And Mental Health Comorbidities" during Wake Up Narcolepsy REAL: Navigating Narcolepsy and Mental Health Education Day Webinar. You can follow Wake Up Narcolepsy at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on Apple Podcasts.

Emma is joined on the podcast by Julie Flygare, President and CEO of Project Sleep. Julie has suffered with Narcolepsy with Cataplexy and is an accomplished sleep disorders advocate. Emma and Julie discuss: *Symptoms and early warning signs of Narcolepsy; *Julie's journey through diagnosis and treatment; *How sleep studies for Narcolepsy differ from those for Sleep Apnea; *The need for more awareness around Sleep Disorders and more money for Sleep Disorders Research; *How listeners can get involved in supporting Project Sleep. You can find all the information about Project Sleep, including social media handles on the website: https://project-sleep.com/ Julie's book "Wide Awake and Dreaming: A Memoir of Narcolepsy" is available now. Find all the details of where to buy it here You can follow Emma on Instagram @sleepapneastories Sign up for email updates about the podcast and get a free printable pdf called "CPAP Lessons I Learned the Hard Way" here

Travis Pavlicek is a husband, father of three and his son Cruz is a child with narcolepsy. In this episode, Travis shares how the onset of Cruz’s narcolepsy symptoms escalated within a span of 3 weeks. He details how his family struggled to find a doctor who knew what was going on with Cruz until finally they drove through the night to Mayo Clinic in Rochester, MN and got a consultation from Dr. Kotagal. Travis also shares how the diagnosis of narcolepsy type 1 affected the entire family. Claire and Travis reflect on the co-morbid and behavior issues that arise for children with narcolepsy. Also how while establishing accommodations for CWN there is a lot of education involved to help administration and teachers understand narcolepsy.  Travis really advocates for parents with CWN to connect with other parents on Facebook groups, to read about children and adult experiences, and be honest with your immediate community. Finally, Travis shares how WUN’s Narcolepsy Family Camp had a profound effect on Cruz. You can follow Travis on Instagram @travispavlicek and on Facebook @travis.pavlicek . Here are some Facebook groups that Travis recommends: Narcolepsy Support Group, Wake Up Narcolepsy, Parents of Children with Narcolepsy, XYREM/XYWAV Support Group, Project Sleep, Narcolepsy Network, More Than Tired and Know Narcolepsy.  You can follow Wake Up Narcolepsy at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on Apple Podcasts.

Emma is joined by Dr Earl Bogrow, a Dentist who specializes in Mandibular Advancement Devices, also called Oral Appliances, to treat Sleep Apnea. During the episode Emma and Earl discuss: *Some of the benefits to Mandibular Advancement devices vs CPAP; *Dr Bogrow's own journey with Sleep Apnea; *How to find a great Dentist to make you an oral appliance. *TMJ issues and how they need to be taken into account when customizing a Mandibular Advancement Device; *Breathing and airways - James Nestor's book "Breath"; *Dr Bogrow's didgeridoo playing and how circular breathing can tone the muscles of the throat. Contact Dr Bogrow: https://michigansleepapneacenter.com/ Search for a Dentist accredited with the American Academy of Dental Sleep Medicine - click here Donate to the Project Sleep fundraising "Sleep In" here

Emma is joined by Stacy Erickson Edwards, a Sleep Disorders Advocate and blogger at www.cpapbabes.com. Stacy discusses: *her journey to getting diagnosed with Sleep Apnea; *dealing with continued sleepiness even after CPAP treatment and exploring other potential sleep disorders; *being diagnosed with Idiopathic Hypersomnia after an MSLT test; *working with Project Sleep to raise awareness about sleep disorders. *taking part in Project Sleep's "Sleep In" fundraiser 12th-14th March; Connect with Stacy: http://www.cpapbabes.com/ Instagram: @cpapbabes Connect with Emma: https://www.sleepapneastories.com/ Instagram: @sleepapneastories Emma and Stacy are both taking part in Project Sleep's "Sleep In" Fundraiser, more details here. You can sponsor Emma here Emma mentioned Stacy's article on not feeling better on CPAP - read it here

Emma talks all about physical fitness and coping with Sleep Apnea. Emma's guest, Ryan King, is a personal trainer who has been working with Gary Knight (friend of the show, guest on episode 4). Emma and Ryan discuss: * How to gradually build up the amount of exercise you're doing even when you're tired; * Alternatives to working out at the gym; *The importance of mindset and breathing; *Unrealistic ideals of beauty. Connect with Ryan on Instagram: @rkfitness_fevo "Sleep In" Fundraiser run by Project Sleep, 12th-14th March 2021 **I'd LOVE to have you on my team to spread awareness of Sleep Apnea!!!** Sign up to join the fundraiser (click "Join Our Team button) or donate: click here Or to learn more about Project Sleep, visit their website: https://project-sleep.com/ or follow them on Instagram: @project_sleep Connect with Emma: Instagram - @sleepapneastories www.sleepapneastories.com

#16: Narcolepsia - sestas no mcdonalds, escrita zombie e desperdiçar a vida a dormir Se no último episódio conversámos sobre a paralisia do sono que é quase tão comum como ter soluços, hoje passamos de 8 para 80 e trazemos um distúrbio do sono beeem raro - hey there, narcolepsia!

TW: This episode discusses sexual assault and rape, which may be triggering for some individuals. Lauren Thomas is a person with narcolepsy, a narcolepsy advocate and works in the champagne business. In this vulnerable and candid episode, Lauren shares how she was diagnosed with narcolepsy just a little over a year and a half ago, but recounts how narcolepsy symptoms were part of her childhood. Lauren also shares her journey with mental health issues, which she now considers were linked to narcolepsy and directly contributed to her delayed diagnosis. After college, she finally saw an endocrinologist, who was helping her with weight loss and recommended a sleep study. This was a pivotal experience that led to a diagnosis of Type 1 Narcolepsy at the age of 28. Despite Lauren’s long journey to diagnosis, she’s taken time to fine tune her medication and adapt her life to support her symptom management, and during this period began to work for her family’s company, Cheurlin Champagne, the 1st African American-owned Champagne Company. Lauren also tested positive for COVID-19 this past March. She shares her experience fighting the virus and how her symptoms weren’t necessarily the standard symptoms being communicated. You can follow Lauren at @lmt826 on Instagram and her family’s business, Cheurlin Champagne, @cheurlin1788   on Instagram. If you are interested in finding out more information about Cheurlin Champagne go to www.cheurlin.com. Lauren recommends Wide Awake and Dreaming by Julie Flygare. She is on the planning committee for World Narcolepsy Day with Project Sleep. She also recommends an alarm clock called MedCenter. She says, “ I am obsessed with my talking alarm clock. I can set up to 4 different alarms at a time and it literally says ‘the time is .... this your reminder to take your meds..’ relentlessly, it’s annoyingly efficient!” You can follow Wake Up Narcolepsy at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on Apple Podcasts.

Shannon Burkoth is a person with narcolepsy, mother, and narcolepsy advocate in the rare disease space. In this episode, Shannon shares how she was diagnosed with narcolepsy when she turned 30, but since then has realized she experienced narcolepsy symptoms since she was a child. Shannon also offers her journey to finding the right doctor and medication. She highlights how people with narcolepsy often deal with multiple comorbid issues which can be exacerbated with the wrong medication. Shannon also shares her journey to becoming a narcolepsy and rare disease advocate. She highlights the grief experience after being diagnosed and no longer able to do the activities she once enjoyed. Through conferences, meeting other advocates, and participating in the Rising Voices of Narcolepsy program, Shannon is empowered to share her story to educate and create awareness. Shannon thank you for your advocacy! You can follow Shannon at @shannon.burkoth on Instagram and @sburkoth on Facebook. You can learn more about Shannon’s advocacy work at shannonburkoth.com. Shannon says, “I want all people with narcolepsy to know they are not alone and there is an incredible community waiting to embrace them!” Shannon recommends Project Sleep’s Rising Voices of Narcolepsy program, Wake Up Narcolepy’s Online Support Groups, Narcolepsy 360 podcast, Wake Up Narcolepy’s Family Camp for CWN and Narcolepsy Network Annual Patient Conference. You can follow us at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on Apple Podcasts.

Julie Flygare is - if you'll pardon the expression - a tireless advocate for people suffering with narcolepsy. Learn how much you didn't know - including how the movies have made it worse for everyone - and what can be done to help. LINKAPALOOZA: https://project-sleep.com/ (Project Sleep's website) http://julieflygare.com/about/ (Everything else you wanted to know about Julie, you can learn here.)

Within this episode of Deep into Sleep, Julie Flygare, the founder, president, and CEO of project sleep, shared her own story and community support resources for Narcolepsy with us, as well as how to deal with Narcolepsy after the diagnosis. Show note: deepintosleep.co/episode/020.

Within this episode of Deep into Sleep, Julie Flygare, the founder, president, and CEO of project sleep, shared her own experience with Narcolepsy, especially the common symptoms of it. Show note: deepintosleep.co/episode/020.

In todays episode I am talking with Julie Flygare who is the president and CEO of Project Sleep and the author of the book: Wide awake and dreaming: A Memoir of narcolepsy. She is talking with me how she is coping with narcolepsy and how she made out of her illness a really cool project which effects a lot people with and without narcolepsy all over the world.

Narcolepsy is a widely misunderstood sleep disorder which affects around 3 million people worldwide. Lack of awareness, and misrepresentation in the media has led many people to struggle not just with managing their condition, but also coping with the social stigmas and prevalent attitudes in society towards narcolepsy and sleep disorders in general. In today's episode we talk to Julie Flygare, lawyer, advocate, award-winning author and CEO of Project Sleep, about the social experience of living with narcolepsy.   This Episode's Guest Julie Flygare, JD is the founder of Project Sleep, a non-profit raising awareness about sleep health and sleep disorders. Julie is a leading narcolepsy spokesperson and award-winning author, diagnosed with narcolepsy with cataplexy in 2007. She received her B.A. from Brown University in 2005 & her J.D. from Boston College Law School in 2009. In 2013, “Wide Awake and Dreaming” won the First Prize Biography/Autobiography Award at the San Francisco Book Festival. Upon recognizing that many doctors were unfamiliar with narcolepsy, Julie collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students. https://www.youtube.com/watch?v=MXTd8xd_f8s More Resources Project Sleep: https://project-sleep.com/ Twitter: https://twitter.com/project_sleep Instagram: https://www.instagram.com/project_sleep/ Youtube: https://www.youtube.com/user/projectsleepvideos/videos Julie's Website: http://julieflygare.com/ Julie @LinkedIn: https://www.linkedin.com/in/julieflygare/ The Book: Wide Awake & Dreaming: A Memoir of Narcolepsy Sleep Junkies Interview: Rising to the challenge: narcolepsy advocate Julie Flygare Episode Homepage: http://sleepjunkies.com/narcolepsy-social-experience/ More Episodes:

Narcolepsy is a widely misunderstood sleep disorder which affects around 3 million people worldwide. Lack of awareness, and misrepresentation in the media has led many people to struggle not just with managing their condition, but also coping with the social stigmas and prevalent attitudes in society towards narcolepsy and sleep disorders in general. In today's episode we talk to Julie Flygare, lawyer, advocate, award-winning author and CEO of Project Sleep, about the social experience of living with narcolepsy.   This Episode's Guest Julie Flygare, JD is the founder of Project Sleep, a non-profit raising awareness about sleep health and sleep disorders. Julie is a leading narcolepsy spokesperson and award-winning author, diagnosed with narcolepsy with cataplexy in 2007. She received her B.A. from Brown University in 2005 & her J.D. from Boston College Law School in 2009. In 2013, “Wide Awake and Dreaming” won the First Prize Biography/Autobiography Award at the San Francisco Book Festival. Upon recognizing that many doctors were unfamiliar with narcolepsy, Julie collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students. https://www.youtube.com/watch?v=MXTd8xd_f8s More Resources Project Sleep: https://project-sleep.com/ Twitter: https://twitter.com/project_sleep Instagram: https://www.instagram.com/project_sleep/ Youtube: https://www.youtube.com/user/projectsleepvideos/videos Julie's Website: http://julieflygare.com/ Julie @LinkedIn: https://www.linkedin.com/in/julieflygare/ The Book: Wide Awake & Dreaming: A Memoir of Narcolepsy Sleep Junkies Interview: Rising to the challenge: narcolepsy advocate Julie Flygare Episode Homepage: https://sleepjunkies.com/narcolepsy-social-experience/ More Episodes:

#4: Julie Flygare is a narcolepsy spokesperson and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. She lives in Los Angeles and speaks across the country and world to open people's hearts and minds to the real narcolepsy, a neurological disorder affecting 3 million people worldwide. Julie is also the founder of Project Sleep, which aims to improve public health by educating individuals about the importance of sleep health and sleep disorders. Project Sleep educates and empowers individuals using events, campaigns, and programs to bring people together and talk about sleep as a pillar of health.    In this episode, you’ll learn about Julie and her own narcolepsy story, how she approaches being present, saying no, living life on her own terms, and how she went about getting an international day dedicated to narcolepsy! (September 22nd!)  To connect with Julie Flygare, click HERE To connect with Leyla Sarper (host), click HERE To find out more about Project Sleep & World Narcolepsy Day check out: https://project-sleep.com/worldnarcolepsyday/ To learn more about Julie Flygare check out: http://julieflygare.com/ Don’t forget to subscribe to the show so you can see when the next episode is posted! If you enjoyed this episode, please share with a friend who may also get value from it. And finally, please leave a review and let us know what you liked or any valuable takeaways you left with. Thank you! XO Leyla

In this episode we talk about all things sleep and much more! How does sleep impact our energy, mood, and clarity? How much sleep do we need each night? How did you discover your Narcolepsy? How can we improve our sleep patterns? Should naps be allowed and supported at work? Let's talk about dreams and remembering dreams What would you tell people who just found out they have narcolepsy? Find your self affirming voice within all the voices in your head. This will make you happier. More about Julie: Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Currently, she serves as President & CEO of Project Sleep, a non-profit organization raising awareness about sleep health and sleep disorders. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development. Where to find Julie: Instagram: https://www.instagram.com/remrunner/ Website: http://julieflygare.com/ Project Sleep: https://project-sleep.com/ Find her book here: Wide Awake And Dreaming --- Support this podcast: https://anchor.fm/morehappylife/support

Kayla Douglas, known as @nomadnarcolepsy on Instagram, is a person with narcolepsy, a narcolepsy life coach and an extensive world traveler!   In this episode, Kayla details her childhood with narcolepsy that led to diagnosis. As a child, she loved to read about the world and in her mind, she traveled all over. It was in college that she was able to make that dream a reality through studying abroad. After that first bit of travel she was motivated to travel more and boy did she travel!  It wasn’t until she left the US to work in Spain, she realized she wasn’t thriving despite being on medication and managing symptoms. With the help of a doctor, she was able to reduce her medication by changing her diet and implementing other stress-relieving practices. To date, Kayla has traveled to AT LEAST 22 countries! Also, she is currently medication free. Kayla offers advice on how to travel with narcolepsy, and now is offering life coaching services to people with narcolepsy.  You can follow Kayla at  @nomadnarcolepsy on Instagram and Facebook. You can learn more about her coaching services and read her blog at  https://www.kaylamdouglas.com/. Kayla recommends Positively Narcolepsy facebook group and Going Beyond Coping blog, in her words, “As they have helped me so much with keeping a positive attitude and finding the most creative little life hacks.” She also recommends Gina Denis, aka Madcap Narcolepsy, if you're interested in learning more about the ketogenic diet. She also recommends the Rising Voices of Narcolepsy Program facilitated by Project Sleep. Because of Rising Voices, she felt empowered to publish this first writing piece -  Scared of the Dark: The Narcolepsy Symptoms that Nobody Talks About. You can follow us at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on iTunes.

This episode is part of my sleep disorder series, and I've been looking forward to this interview for a while. I met Julie Flygare online, through our Instagram accounts and a mutual interest in sleep. Julie is the founder of Project Sleep and an advocate for people living with narcolepsy. Before meeting Julie and reading her book, I didn't know anything about narcolepsy. I thought it was what most of us think - falling asleep suddenly without any control of where you are or what you're doing. Narcolepsy is very misunderstood, and not all that rare, and that's why I wanted to have Julie tell her story.You can find Julie on Instagram as @remrunner, Project Sleep's website at: https://project-sleep.com, and the Narcolepsy Not Alone campaign at: http://www.narcolepsynotalone.com/A HUGE Thank you to this episode's sponsor, Zenbev, a natural drink mix that promotes sleep by easing anxiety and racing thoughts. It contains only a small handful of natural ingredients and tastes great! Save 10% off your order with the coupon code, SLEEPCOACH10, at https://zenbev.com Hosted on Acast. See acast.com/privacy for more information.

Julie Flygare is an author, Founder, CEO & President of Project Sleep, an advocate and a person with narcolepsy. She started the Narcolepsy Not Alone Campaign, the Jack and Julie Scholarships for college-age students with narcolepsy and the Rising Voices of Narcolepsy Program. In this episode, Julie shares her diagnosis story which led her to change her career trajectory and embark on becoming a vocal advocate for people with narcolepsy. Her advocacy has allowed her to write a memoir, found a non-profit, work in the public policy space, create international social campaigns, and develop programs that empower other pwns to become advocates. She also shares the exciting upcoming World Narcolepsy Day launch which takes place September 22, 2019. This episode is jam-packed with information about the programs and support Project Sleep is currently offering. Julie and Claire discuss what is going on with federal funding for sleep and narcolepsy research. How to use social media as an advocate, and what it’s like to write a memoir! It was such a pleasure to hear Julie's story and work. You can follow Julie at @REMRunner on Instagram & Twitter and @JulieFlygareAuthor on Facebook. You can learn more about advocacy work at www.julieflygare.com. You can also follow Project Sleeps efforts at @project_sleep on Instagram & Twitter and @ProjectSleepAwareness on Facebook. You can learn more about the programs, initiatives, and support Project Sleep offers at  www.project-sleep.com.   You can follow us at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on iTunes.

Elle Wales is a graphic designer, known as Falling Asleep Elle (on the internet), creator of narcolepsy memes and a person with narcolepsy.   In this episode, Elle shares her diagnosis journey with Claire and how she navigated her university education while figuring out how to best manage symptoms. In the midst of all these transitions, Elle’s imagination, creative talents, passion for advocacy and honesty influenced her to first create a narcolepsy guidebook for her honours project, which you can access on falling-asleep.com. Elle also discusses the transition from school to maintain full-time work.   Elle has continued her creative advocacy endeavors by creating #NarcolepsyMemes. #NarcolepsyMemes are shareable images or gifs that usually speak about the reality of living with narcolepsy in a humorous but not belittling way. Through Instagram and #NarcolepsyMemes, Elle educates, advocates, and simply shares the day to day life of a PWN. She also has been honest and open about her mental health and how it does/does not relate to her narcolepsy.   It was such a pleasure to hear Elle’s story and work. You can follow Elle at @falling_asleep_elle on Instagram and @fallingasleepnarcolepsy on Facebook. You can learn more about narcolepsy on falling-asleep.com. Elle’s from Australia, so she recommends the Narcolepsy Support Australia Facebook Group. She also recommends the Rising Voices of Narcolepsy Program facilitated by Project Sleep.   You can follow us at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on iTunes.

As a board-certified family nurse practitioner working in a sleep medicine clinic, Ellen Wermter has seen a wide variety of sleep disorders, including severe cases of sleep apnea, insomnia, narcolepsy, and restless leg syndrome. She joins the podcast to discuss what she sees from this unique perspective—one that isn't often portrayed at all or portrayed correctly in the media. For example, she explains that narcolepsy is not only underrecognized but also misunderstood by many people; contrary to popular belief, the main presentation of narcolepsy is excessive daytime sleepiness—not unexpected episodes of falling to the ground and entering a deep sleep. Wermter discusses how “excessive daytime sleepiness” is defined and identified clinically, the causes of narcolepsy—which are likely both genetic and environmental in nature—and one of the newest types of treatment for narcolepsy, which is not yet FDA-approved, but can be used in the US through a program called PEACE since it's been shown to be successful in Europe. She also discusses sleep paralysis and cataplexy, which happen when the REM stage of sleep intrudes on the waking hours, one of the lesser common symptoms of sleep apnea, and how sleep studies work—despite the challenges. Tune in for the full conversation, and find resources by visiting the Narcolepsy Network, Project Sleep, the National Sleep Foundation, and local support groups.

This week I'm joined by Julie Flygare for a conversation about narcolepsy advocacy, running the Boston Marathon, a lesson in what it takes to write your own memoir, the growth of Project Sleep, the impact of Narcolepsy: Not Alone, The Simpsons, and funny ways to pronounce last names. Follow Julie on Twitter @RemRunner, julieflygare.com, and project-sleep.com. Run Time - 37:25 Send your feedback to feedback@justtalkingpodcast.com.