Podcasts about disability community

In this week's episode I sat down with Mark Povinelli. Mark is an activist as well as an actor on stage and screen. He is currently portraying Benjamin Lay, shepherd, sailor, revolutionary, the British Empire's first revolutionary abolitionist, and someone whose story for too long has not been told, in the Off-Broadway production of The Return of Benjamin Lay. We discuss who Benjamin Lay was, how this show came to be, the importance of telling this story at this time, much more. Join The Patreon: Click Here Get your tickets to see The Return Of Benjamin Lay (Use the discount code"LPA"): Here Follow The Return Of Benjamin Lay Play: Instagram: @benlayplay Follow Mark: Instagram: @markpovinelli IMDb: Mark Povinelli Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf This episode was edited and produced by Ben Curwin

In this week's episode I sat down with Rachel Wherley, Erin Elswood, and Shelby Holloway, the co-directors of the Mascots Matter campaign. Mascots Matter is an independent grassroots advocacy initiative calling for the retirement of offensive disability mascots. We discuss the origins of the “m” slur and its continued, harmful use through to present day, the founding of Mascots Matter and its advocacy efforts thus far, why discriminatory disability mascots are not just a local issue and much more. For reference, this conversation was recorded on March 18, 2025. Also, the “m”-slur will be used in context when explaining it as a slur as well as referring to these mascots. It is important to note that neither myself nor my guests condone the use of this word nor is it a part of our vocabularies. Follow And Support Mascots Matter: Website: https://mascotsmatter.net Donate Here Instagram: @mascotsmatter Facebook: Mascots Matter Follow Rachel: Instagram: @thatlittlemom TikTok: @thatlittlemom Follow Erin: Instagram: @erinkaseyhughes Follow Shelby: Instagram: @shelbyhollowayy TikTok: @shelby_holloway Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

In this week's episode I sat down with Melanie Waldman. Melanie is a multi-award-winning filmmaker with the Easterseals Disability Film Challenge, a member of SAG-AFTRA, an on-air talent member at QVC, host of the Disability Reality Podcast (which, yours truly, will be making an appearance on very soon talking all things on Bravo), and she STILL somehow finds time to teach adaptive yoga to the disability community & beyond! We discuss disability as a collective and the healing power of connection within, turning adversity into joy, the opportunities that arise from authenticity and much, much more. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow Melanie: Instagram: @whereswaldman TikTok: @whereswaldman Listen to Disability Reality Podcast: Spotify Apple Podcasts Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

In this week's episode it is just me and the microphone as I sit down to answer your questions about my ongoing surgery recovery journey, healing in a world that was not necessarily designed for me, ending the chapter that was my twenties and preparing to enter the chapter that will be my thirties. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

https://youtu.be/OFS8SpwioZ4?si=Lkz2ow7ycwxDTdp6 please watch cripped camp please join the movement in protecting and amplifying the voices of disabled people

How President Trump Bringing Back Plastic Straws Will Help The Disability Community Have One Leg Up in America 2-8-25

Welcome back to Trump's America and another round of attacks against people with disabilities. In the past week we saw Trump try to blame our community for the crash of American Eagle Flight 534. Trump's comments came less than 48 hours after his administration tried to freeze federal funding for many disability organizations, as well as programs like Medi-Cal and Section 8.  With all this chaos, it's understandable if you want to hide in the bedroom watching reality television for the next four years. Nieta Greene However, this Friday at 2:30 PM, Nieta Greene has another idea! She'll be encouraging people with disabilities to resist Trump‘s policies on KPFA's Pushing Limits program. Green is the founder and CEO of Disability Community for Democracy. She works to get organizations and policymakers to consider the needs of persons with disabilities. This new organization is dedicated to preserving, protecting, and defending liberal democracy and disability rights. On March 1st, the group will host a protest on zoom to push back against Trump's policies. Additionally, the organization advocates alongside public officials to do a better job at encouraging voters with disabilities to run for public office. Plus, we will hear from the next generation of truth-tellers as Josh Elwood interviews people with disabilities who are learning how to produce radio through a KPFA internship program. Thanks to grant support from Berkeley City College, Clayton Pedersen and Jess Hutcheson are gaining valuable work experience in the fields they would like to pursue – music and talk radio. Tune in to hear more! This episode of Pushing Limits is written and produced by Jacob Lesner-Buxton and Josh Elwood. It is hosted and voiced by Denny Daughters. Editing by Dominick Trevethan and Denny Daughters. Relevant Resources: Link to Disability Community for Democracy Also, look for them on Facebook, Instagram, and Bluesky. PSA: The recent devastation of the Southern California wildfires has shown us how important emergency/disaster preparedness is…and we've got some answers! Join Community Resources for Independent Living (CRIL) and CIL's Emergency Preparedness and Resilience program for a special Emergency Preparedness 101 specifically for Blind/Low Vision Communities, led by CIL's Emergency Preparedness Coordinator, Sheela Gunn. This workshop will be held as a hybrid, both virtually over Zoom and in-person at the Ed Roberts Campus, 3075 Adeline Street, Berkeley, 94703, in the Osher Room. When: Thursday, February 13th, 2025, from 1:00 – 4:00 PM. Where: Ed Roberts Campus, 3075 Adeline Street, Berkeley, 94703, in the Osher Room and via Zoom: https://us02web.zoom.us/j/82594949995 What: A workshop for people who are Blind or Low Vision that live in the San Francisco Bay Area to learn, then apply, the basics of emergency/disaster preparedness. Who: The Center for Independent Living (CIL), serving northern Alameda County, and Community Resources for Independent Living (CRIL), serving southern Alameda County. Accessibility: The Ed Roberts Campus is a wheelchair-accessible space. Masks required for in-person attendees. Wayfinding support available. Other accommodations available upon request. Register at: https://bit.ly/EP101BLIND1 The post Disability Resistance in the Age of Trump – Pushing Limits – February 7, 2025 appeared first on KPFA.

In this episode I sat down with Violet aka hi its vi. Violet is a disability advocate, filmmaker, and content creator with almost 100 thousand followers on TikTok. Violet's advocacy focuses on the representation of people with dwarfism in the media. For context, we recorded this episode on February 3rd following remarks made by the President and the media about people with dwarfism. This is a conversation unpacking how society perceives, acts toward, and talks about people with dwarfism as well as the relationship between disability organizations and politics. Trigger warning for harmful rhetoric. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf   Follow Violet: TikTok: @hi.itsvi Instagram: @hello.itsvi Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Episode Title: The Unseen Struggles and Solutions for the Disability Community with Devon Wieters   In this episode, I sit down with the passionate and inspiring Devon Wieters, a survivor with cerebral palsy and an advocate for the disability community.   Devon shares powerful insights into his personal journey and sheds light on the complex challenges faced by people with disabilities, particularly surrounding Medicaid and societal misconceptions.   Here's what you can expect from this conversation:   ✅ Medicaid Waivers Demystified – Discover the often-overlooked aspects of Medicaid waivers, including how current policies can hinder the independence of those with disabilities. ✅ The Marriage and Income Penalty – Devon explains how current laws prevent many people with disabilities from achieving both financial independence and the ability to marry. ✅ Misconceptions About Disabilities – From romantic relationships to mental health, Devon challenges common stereotypes and provides a new perspective on the lives of people with physical disabilities. ✅ Advocacy and Action – Learn how you can support legislation like the SSI Restoration Act and the SSI Savings Penalty Elimination Act, crucial steps toward reforming disability services. ✅ A Personal Touch – Hear from Devon about the importance of helping others, a message that resonates deeply with us all.  

Send us a textIn this compelling episode of Fertility in Focus, we are joined by Andrea Hanson, a fertility patient, and Allie Reis, a traditional surrogate egg donor. Andrea openly shares her complicated and emotional journey with infertility, which began at age 27 after a karyotype test revealed a reciprocal translocation. Facing numerous challenges, Andrea underwent six rounds of IVF, 11 miscarriages, and 12 embryo transfers. Despite these hurdles, she welcomed her daughter in 2020.By the end of 2022, Andrea turned to traditional surrogacy and connected with Allie, who chose to become an egg donor even after having her tubes tied in 2018. The pair discuss how they met through social media and embarked on this journey together. Allie shares her experience of the egg retrieval process and the impact of her decision to become a surrogate on her relationship with her husband.The episode delves into the detailed fertility plan, the various steps involved, and the necessary tests. The women openly discuss the emotional responses from their families and friends and the crucial role of counselling in their journeys. Tune in for a heartfelt discussion about traditional surrogacy and the unique fertility journeys of Andrea and Allie.More About our Guest Speakers:Andrea Hanson is a healthcare professional and consultant specializing in third-party reproduction in Ontario. She co-founded Fertility Link, launching soon, and has spent over 20 years in the healthcare field, including a decade as an Occupational Therapist in Ontario's healthcare system, a role she continues part-time.Andrea holds an Honours Specialization in Biology from the University of Western Ontario and a Master of Science in Occupational Therapy from Queen's University. She is a member of the Canadian Fertility and Andrology Society and the College of Occupational Therapists of Ontario. For more information about Andrea, you can visit her website: fertilitylink.ca or follow her on social media @scottyandy (personal) or @fertilitylink (professional). Allison Reis is a dedicated professional in the Disability Community, providing family support and inclusive programming for those facing participation barriers. With 15 years of experience in preventative healthcare and recreation, she holds a diploma in Recreation and Leisure Services and a certificate in Leadership.In 2023, Allison founded Sprouted In Life Support Service, offering 1:1 goal-focused respite for families and professionals, a venture that has brought her great joy. To connect with Allie, you can follow her on instagram @traditional.canadian.surro.First Response Canada Afynia Laboratories, a Canadian biotechnology company, is pleased to announce the availability of EndomiR, the first validated diagnostic blood test for endometriosis. Afynia is currently offering EndomiR to Canadian fertility clinics for patients with unexplained infertility and/or symptoms suggestive of endometriosis. EndomiR shortens the diagnostic pathway by providing physicians with actionable data to inform safe and effective treatment options.

In this week's episode I sat down with Keely Cat-Wells. Keely, a Forbes 30 Under 30 honoree and Presidential Leadership Scholar, has been a dedicated advocate for disability rights since becoming Disabled in her teens. She is the CEO of Making Space, a talent acquisition and learning platform and co-founded Making Space Media, producing content that centers Disabled voices. We discuss investing in disability, the success of creating pipelines to companies such as NBC, Indeed, and Hello Sunshine, making outer space accessible and much, much more. This episode was recorded before the LA fires. Learn more about and support the Mascots Matter Campaign using the link here: https://bit.ly/4h6XN16 Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow Keely: Instagram: @keely_cat_wells LinkedIn: Keely Cat-Wells Website: https://keelycatwells.com/ Follow Making Space and Making Space Media: Instagram: @_making_space__ , @_making_space_media Website: https://www.making-space.com/   Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

In this week's episode I sat down with Julia Métraux. Julia is Mother Jones' disability reporter, where she covers disability, chronic illness and mental health as it relates to politics. Her experience is influenced by her lived experience with vasculitis, a TBI, ME/CFS and hearing loss. We discuss what it means to be a disability reporter, how reporting on disability has evolved over time, issues and stories she is looking out for in the upcoming administration and much, much more. Follow Julia: Instagram: @julia.metraux BlueSky: @metrauxjulia Newsletter: Julia Métraux Website: https://juliasmetraux.journoportfolio.com Mother Jones: Julia Métraux Mentioned Articles: The New Yorker Business Insider Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

In this week's episode I sat down with Marissa Bode. Marissa is an artist and actor who made history in her feature-film debut as Nessarose in the film Wicked, being the first actor that is also a wheelchair user to play the part. We discuss her audition process, what Nessa means to her, the importance of seeing disabled characters authentically portrayed on screen and stage and much, much more. And yes, there will be spoilers. Follow Marissa: Instagram: @marissa_edob TikTok: @marissa_edob YouTube: Marissa Bohdee   Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Individuals with disabilities often encounter significant hurdles in accessing quality healthcare due to limited accessibility options and a scarcity of available services. In this episode of Parenting Impossible, I address the challenges individuals with disabilities face in accessing quality healthcare, including limited services and barriers like Medicaid restrictions. I advocate for policy changes to enhance resources and emphasize the importance of building community to share experiences and solutions. By shifting from a scarcity mindset to one of abundance, focusing on strengths, and setting personalized goals, individuals can better navigate these hurdles. I also highlight the value of education, online resources, and mindfulness in creating a supportive network that fosters growth and advocacy. In this episode, you will hear: Why advocating for policy changes is crucial to increase accessibility and support. How to shift from a scarcity mindset to an abundance mindset when setting goals. The importance of individualized planning for individuals with disabilities. Why building a community is important in supporting individuals with disabilities.   Engage with us: Join our community: Circle of Care Visit:  https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc  Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo   Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.  

Send us a textSpeech is something many of us take for granted, but for millions in the disability community, it can be a daily source of struggle and frustration.Augmentative and alternative communication (AAC) tools, such as sign language, are essential for those with speech disabilities to communicate. What if technology could help give a voice to those in need?In this episode of HealthBiz Briefs, Dougal Hawes, CEO of Smartbox Assistive Technology, explores how their AAC technology is empowering individuals with speech difficulties to communicate and live more independently.This episode is brought to you by BetterHelp. Give online therapy a try at https://betterhelp.com/caretalk and get on your way to being your best self.As a BetterHelp affiliate, we may receive compensation from BetterHelp if you purchase products or services through the links provided.

Discover how cybersecurity is being reshaped to be more inclusive and accessible for everyone, especially those with disabilities. Join us as we host an enlightening conversation with Lauren Iglehart, CISA's Chief of the Office of Equity, Diversity, Inclusion, and Accessibility, and Bob Nadeau, the Partnerships Branch Chief within Strategic Relations at the Cybersecurity and Infrastructure Security Agency. While Neil Milliken enjoys a break in Thailand, our guests share the United States government's groundbreaking initiatives aimed at making cybersecurity resources available to all. Learn about the Secure Our World campaign, designed to mitigate cyber risks while fostering digital equality, and hear how these efforts are making a global impact on infrastructure protection.We also explore the importance of diversity within CISA's workforce, including the Neurodiverse Federal Workforce Initiative, which focuses on recruiting individuals with autism and other targeted disabilities. Gain insights into how diverse perspectives enhance innovation and problem-solving in the face of evolving cybersecurity threats. Our discussion highlights the challenges and opportunities presented by AI and underscores the need for comprehensive cybersecurity education. Additionally, we touch on the complexities of managing a multigenerational workforce and the importance of leadership in adapting to a rapidly changing security landscape. Listen in for a deeper understanding of how CISA is leading the charge toward a more secure and inclusive digital future.Support the showFollow axschat on social mediaTwitter:https://twitter.com/axschathttps://twitter.com/AkwyZhttps://twitter.com/neilmillikenhttps://twitter.com/debraruhLinkedInhttps://www.linkedin.com/in/antoniovieirasantos/ https://www.linkedin.com/company/axschat/Vimeohttps://vimeo.com/akwyz

I'm back! After a brief hiatus I am back on the microphone to catch you all up on what has happened in the too many minutes that we've been apart. I share how my recovery has been going, talking about the ups, the downs, the moments of joy, of frustration, and everything in between, before sharing what my plans are for the future of Always Looking Up as we head into the new year. Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Join me for one of my show's most inspiring interviews yet with the incredible Ali Ingersoll, whose life took a dramatic turn after a diving accident left her a C6 quadriplegic. Ali shares her adventurous pre-accident life, her harrowing recovery journey, and her inspiring work as a disability rights advocate. Most importantly though, she shares why victimhood is a choice and how we can use the power of perspective and taking responsibility for ourselves as the key to changing our lives for the better - no matter the adversity that we face. Get ready to laugh, tear up and be beyond inspired by the incredible, Ali Ingersoll.  Learn more about Ali and connect with her here: https://aliingersoll.com/  CLICK HERE to ORDER Kate's book "Okay. Now What?" - How to Be Resilient When Life Gets Tough. Want to download a free chapter of my book to give it a read first? CLICK HERE. Want to Kate to speak at your event or workplace? Visit https:https://www.kategladdin.com/ Check out Kate's personalised life coaching programs: https://www.kategladdin.com/coaching    Introduction to the Episode (00:00:00)   Kate Gladdin introduces episode 18 and welcomes guest Ali Ingersoll. Ali's Colorful Background (00:01:06)   Ali shares her unique upbringing and experiences traveling around the world. Moving to China (00:03:37)   Ali discusses her spontaneous move to China and experiences there. Life-Changing Accident (00:06:53)   Ali recounts the shallow water diving accident that left her paralyzed. Initial Recovery Challenges (00:07:50)   Ali describes her recovery journey, including medical challenges and surgeries. Struggles and Resilience (00:08:36)   She shares her ongoing struggles, including health issues and mental health challenges. Connecting with the Disability Community (00:11:17)   Ali explains how connecting with the disability community changed her life. Advocacy Work (00:12:13)   Ali discusses her advocacy efforts for health equity and disability rights. Navigating Personal Life (00:12:27)   Ali talks about her dating life and the intersection of personal experiences with advocacy. Combining Advocacy and Business (00:13:56)   Ali shares her journey to becoming a disability strategy consultant and speaker.  Conclusion of Ali's Journey (00:15:14)   Kate reflects on Ali's inspiring journey and the lessons learned along the way. Ali's Surgery Experience (00:16:45)   Ali describes a failed surgery and the emotional impact of her recovery journey. Finding Community (00:17:44)   Ali shares how connecting with others on Facebook helped her feel less isolated during recovery. The Importance of Support (00:18:27)   Ali emphasizes the need for community support and understanding from those who have shared similar experiences. Choosing Empowerment (00:19:10)   They discuss the significance of choosing to empower oneself instead of adopting a victim mentality. Belief Systems and Life's Challenges (00:19:25)   Ali reflects on whether everything happens for a reason, emphasizing personal interpretation of life's events. Mentorship and Listening (00:21:00)   Ali talks about mentoring women with similar experiences and the importance of listening to their needs. Processing Grief and Loss (00:22:09)   The speakers discuss the complexities of grief and how personal experiences shape their perspectives. Life's Unexpected Paths (00:24:11)   Ali considers how her life would have been different without her accident but finds meaning in her current path. Redefining Happiness (00:24:39)   Ali's TED talk focuses on the concept of "happy enough" and the societal pressures surrounding happiness. Taking Responsibility (00:25:33)   Discussion on taking 100% responsibility for one's life and the impact of mindset on personal growth. Emotional Hostage Situations (00:28:24)   Ali describes how negative thoughts can trap individuals in their own lives, hindering progress. Humor in Difficult Times (00:31:22)   The importance of humor and light-heartedness in coping with serious life challenges is highlighted. Legacy and Impact (00:32:32)   Ali expresses her desire to leave a legacy that positively impacts others rather than focusing solely on personal achievements. Social Media and Doomscrolling (00:33:06)   Ali discusses her use of social media, including a phase of doomscrolling. Happiness vs. Purpose (00:33:27)   Kate reflects on the difference between external validation and finding internal peace after loss. Hope Among Holocaust Survivors (00:34:24)   Ali shares insights from studies on Holocaust survivors and the power of hope during adversity. Altruism and Selfishness (00:35:11)   The speakers debate whether altruism is selfish if it benefits both the giver and receiver. Finding Meaning in Grief (00:36:07)   Kate explains how her sister's death led her to seek underlying problems and create a charity. Risk Assessment in Adventure (00:37:40)   Ali describes her approach to risky activities, emphasizing research and acceptance of consequences. Cultural Differences in Grief (00:38:01)   The conversation touches on varying beliefs about death and how they influence behavior. The Power of Perspective (00:40:19)   Kate shares a story about a farmer illustrating the unpredictability of life events and responses. Curiosity as a Life Principle (00:41:06)   Ali encourages being insatiably curious and learning from diverse experiences and conversations. Friendship Dynamics (00:41:47)   The speakers discuss the unrealistic expectation of finding everything in one friend. The Importance of Resilience (00:42:31)   Kate emphasizes the choice between being a victim of circumstances and maintaining resilience. Connecting with Ali Online (00:43:19)   Ali shares her blog and website for listeners to connect with her and her work.

Exercise equipment and technology make working out easier, but it’s hard for people with disabilities to access them. Alexandra Jamieson, research scientist at the University of Texas at Arlington, works to fix this. Jamieson received her BS in Biomedical Engineering at the University of Texas at Arlington in 2018. She has been working as a […]

It's claimed a landmark moment has been reached for Clare's disabled community. The Government has confirmed it will ratify the optional protocol of the United Nation's Convention on the rights of people with disabilities, over 6 years after the main body of the legislation was passed in Dáil Eireann. The measure will ensure a system is in place for people with disabilities to take complaints directly to the UN if they feel they're suffering a human rights violation in Ireland. Ennistymon Fine Gael Senator Martin Conway believes it's a major step forward, but admits much more barriers must be broken down to achieve equality.

Our guest this week is Chris Hunter of Orlando, FL a father and grandfather, who has devoted much of his career to serving families with special needs, to help plan their financial future.  Chris and his wife, Jane, have been married for 40 years and are the proud parents of an adult daughter and four grandchildren. Chris is from Canada.  He has a civil engineering degree from New Brunswick University and a MBA from York University.  For 15 years, Chris worked for LafargeHolcim as a professional engineer.  The next 15 years he worked as a financial advisor for Merrill Lynch.  Since 2009 he has been a financial advisor, vice president & investment officer at Wells Fargo Advisors.Chris has been very intentional about serving families touched by disability in a way that separates him from most of the advisor community. His is story of compassion and care.  And we'll hear his story on this week's episode of the SFN Dad to Dad Podcast.Show LinksPhone – (407) 592-4939Email - Chris.Hunter@wellsfargoadvisors.comLinkedIn -  https://www.linkedin.com/in/chrishunterorlando/Website - https://fa.wellsfargoadvisors.com/chris-hunter/Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  

In this special episode Jillian sat down with Ariella Elm. Ariella is a content creator on TikTok who covers politics, local and global news. With Election Day just around the corner we discuss voting and accessibility and making sure that disabled voices are heard and disabled votes are counted. Election Resources: https://vote.gov https://www.ada.gov Find Out How to Vote in Your State - AAPD Follow Ariella: TikTok: @ariellaelm Instagram: ariella.elm Threads: @ariella.elm Twitter/X: @AriellaElm YouTube: Ariella Elm Substack: https://ariellaelm.substack.com  Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

In this special episode it is just me and the microphone as I share a little life update as I will be having surgery in the matter of days which means the podcast will be on a bit of hiatus. I then discuss what it has been like to live and exist in my body during this time, the impact it has had on my physical, mental, emotional, and social health before looking ahead to the future, talking about what I'm looking forward to and working towards. Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

In this week's episode I sat down with Steven Verdile. Steven is the founder of Squeaky Wheel Media, a nonprofit organization that empowers disabled writers to use humor to combat ableism, and the first-ever satire publication focused on disability. We discuss the ways in which traditional comedy spaces are inaccessible, why it was so important to build a team of writers with voices that are authentic and genuine, how The Squeaky Wheel consistently finds the right balance of laughter and reality, and much, much more. Follow Steven: Instagram: @sillyverdile Twitter: @StevenVerdile Website: https://www.stevenverdile.com Follow The Squeaky Wheel: Instagram: @thesqkywheel Website: https://thesqueakywheel.org Facebook: The Squeaky Wheel Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

In this week's episode I sat down with Sophia Herzog Gibb. Sophia is a two-time medal-winning Paralympian, having competed as a swimmer in the 2016 and 2020 Paralympic Games in Rio and Tokyo. She is now joining NBC as a contributor covering the 2024 Paralympic Games in Paris. We discuss the excitement and media coverage surrounding this year's Paralympics, important language you need to know, how she prepared to take on this role, what it means to her to be the first little person commentator at NBC, and much, much more. Follow Sophia: Instagram: @sophiaherzog Twitter: @SophiaHerzog Follow Team USA: Instagram: @teamusa TikTok: @teamusa Twitter/X: @TeamUSA YouTube: Team USA  Website: https://www.teamusa.com Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

Dave Recaps the Abilities Expo in Houston for the GSS Show.  What is the greatest trade show for the Disability Community? The Abilities Expo of course! Dave Stevens recaps the Houston show with some amazing new products that can change the lives of many with seen and unseen disabilities. Check out the show! Brought to you by Serendipity Yacht Cruises and Events and Your Home TV and All Wheels Up www.yourhometv.com www.sycruises.com www.allwheelsup.org

In this week's episode I sat down with Tiffany Yu. Tiffany is the CEO & Founder of Diversability, an award-winning social enterprise to elevate disability pride, the Founder of the Awesome Foundation Disability Chapter, and the author of The Anti-Ableist Manifesto: Smashing Stereotypes, Forging Change, and Building a Disability-Inclusive World. We discuss the creation and evolution of Diversability, the work that happens in community and solidarity, being an amplifier of other disabled voices and much, much more. Follow Tiffany: Instagram: @imtiffanyyu Twitter: @ImTiffanyYu LinkedIn: Tiffany A. Yu, MSc TikTok: @imtiffanyyu Website: https://www.tiffanyyu.com Buy The Anti-Ableist Manifesto: Yu & Me Books Amazon Barnes & Noble Books-A-Million Bookshop  Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

Last week, a StatsCan report revealed people with disabilities are twice as likely to live in food insecure households. We explore the contributing factors with Producer Grant Hardy. Government of Canada Health Report

Members of the disability community say the new government sanctions on benefits fails to address difficulties they face, such as career restrictions, the housing crisis, and accessible transport. Rachel Perterson is part of the disability community and spoke to Guyon Espiner.

In this week's episode I sat down with Kayla Hamilton. Kayla is a Texas-born, Bronx based performance maker, dancer, educator, and consultant. She is a Bessie Award-winning dancer and her performance, choreographic and disability arts work has been presented by institutions across New York City and the U.S. In July of 2024 she announced the creation of Circle O, a new cultural organization established by and for Black Disabled and other multiply marginalized creatives. We discuss her journey to becoming a dancer, creating space in places where disability is often not welcome, the stories that can be told and the voices that can be heard through the art of movement and much, much more. Buy Tickets: Open Call: Kayla Hamilton at The Shed HERE Follow Kayla: Website: https://www.khamiltonprojects.com/k-a-y-l-a-h-a-m-i-l-t-o-n Follow Circle O: Instagram: @circleo_org Website: https://www.circleo.org Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

In this week's episode I welcomed back Aubrey Smalls. Aubrey is an actor, filmmaker, and content creator with dwarfism who uses his platforms to educate people about what it means to be a little person and dwarfism history. We discuss how the historical beliefs, behaviors, perceptions and prejudices towards people with dwarfism have persisted and evolved through to present day in a world where conversations are now being driven by algorithms and the mainstream media and how it impacts the dwarfism community. Follow Aubrey: Instagram: @theaubreysmalls , @dwarfismhistory TikTok: @aubreysmalls Website: https://www.dearaverageheightpeople.com Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin.

Hello Brave Friends! This is a Summer Re-Run of one of our favorite Ask Us Anything episodes from Seasons 5 and 6. Call in to our SpeakPipe to ask YOUR questions and tune in next season, starting in September 2024, for many more. This is another Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! Today we're discussing the topic of comparing. Whether it's our stories, our parenting styles or our child's outcomes, comparing, it seems, is just human nature. It's a tool we use to identify and connect with others who are like us but can also turn competitive and ugly. How do we support and honor each other's journey's without feeling better or worse off than our sisters? Whether you have questions as a parent to a child with complex medical or mental health needs or you're someone looking to support a care-giving parent, we would LOVE to hear from you. If you have any topic requests or if you would like to ask a question, leave us a message here.Find more information about Life Coach, Susanna Peace Lovell here.Find more information about Kimberly Kooy, LMFT here.  Find the UNSEEN list of ways you can support care-givers here. Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. JOIN the international community of We Are Brave Together here.Donate to our Retreats and Respite Scholarships here.Donate to keep this podcast going here.Can't get enough of the Brave Together Podcast?Follow our Instagram Page @wearebravetogether or on Facebook.Feel free to contact Jessica Patay via email: jpatay@wearebravetogether.orgIf you have any topic requests or if you would like to share a story, leave us a message here.Please leave a review and rating today! We thank you in advance!Disclaimer

In this week's episode I sat down with Daisy Friedman. Daisy is a writer and director based out of New York City. Her history as a multi-organ transplant recipient has drawn her to create work that centers on the intersections of tradition, intimacy, embodiment, and disability. We discuss the spaces in between disabled and not, the power in telling disabled stories that are raw, visceral, and personal, the making and importance of her acclaimed short film As You Are, spoilers ahead, and much, much more. Watch As You Are: https://www.shortoftheweek.com/2024/05/07/as-you-are/ Follow Daisy: Instagram: @daisyfriedman_ Website: https://www.daisyfriedman.com Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin

In this week's episode it is just me and the microphone as I sit in my thoughts and feels and reflect on the Little People of America national conference that just took place in Baltimore. I explain what the national conference is, reflect on what the week meant to me and yes, there was certainly some laughter and perhaps tears. Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin

On this rebroadcast episode of the Special Chronicles Podcast: Disability Belongs formally known as respect ability Senior Vice President Entertainment and News Media Lauren Appelbaum sits down with Award-winning Podcast Host Daniel Smrokowski for a conversation about how this nonprofit organization is fighting stigmas and advancing opportunities for people with disabilities. Tune in as we chat about the mission of RespectAbility, The RespectAbility Report, Inclusion in Hollywood, How Pixar Connects with Disability Community, Working with Emmy-winning DocuSeries Born This Way, Toolkit of resources for disability community, and much more! This episode originally aired January 14, 2018 --- Listen full episode here. Episode 587 ShowNotes & Links:

In this week's episode I sat down with Pamela Rae Schuller. Pamela is an internationally known disability and mental health advocate, and professional stand-up comedian. We discuss how she combines comedy and storytelling with a message about inclusion and mental health, how certain humor has to be earned, being powerfully snarky, underestimating our younger selves and much, much more. Follow Pamela: Instagram: @pamelacomedy YouTube: Pamela Comedy Website: https://pamelacomedy.com/ Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin

In this episode of Raising Kellan, host Marsh Naidoo sits down with Jeff Strand from the Tennessee Disability Coalition to delve into the significant legislative changes in 2024 and what's on the horizon for 2025. Jeff provides an insightful update on key bills, including the successful passage of the TCA cleanup bill, the impactful Right to Repair legislation for wheelchair maintenance, and the groundbreaking Medicaid buy-in program for working adults with disabilities. They also discuss the ongoing efforts and challenges in implementing paid family caregiving and the evolving landscape of special education policies. Tune in to understand how these legislative efforts are shaping the lives of individuals with disabilities in Tennessee. 00:00 Introduction and welcome 02:00 Recap of Jeff Strand's previous appearance on episode 111 04:30 Updates on the TCA Placard Bill (modernization of language) 07:45 Right to Repair Part Two for wheelchairs. 13:20 National recognition of Tennessee's right to repair legislation 15:00 Medicaid buy-in program for Working Adults with Disabilities 27:00 Paid Family Caregiving Resolution 34:00 Medicaid home and community-based services waiver 38:00 Discussion on congregate accommodation for individuals with disabilities 45:00 Future legislative efforts and community involvement 55:00 Closing remarks and call to action For more information, visit the Tennessee Disability Coalition's website at tndisability.org. Don't forget to leave a rate and review on your podcast platform, and stay connected with --- Send in a voice message: https://podcasters.spotify.com/pod/show/marsh-naidoo/message

On today's episode, I'm sharing my answer to the question what am I most passionate about? I also share a new opportunity that I have coming up.

In this week's episode I sat down with Dustin Giannelli. Dustin Giannelli is the CEO & Founder of HearsDustin LLC and a DEI and Accessibility focused public speaker and consultant. He shares his lived experiences as someone who is profoundly deaf and has worn hearing aids since the age of 5 as a way to highlight DEI best practices and the importance of accessibility and communication. We discuss the feeling of living in between two different worlds, the message he shares with brands across all industries, and, because it is the third anniversary of Always Looking Up, we highlight some of the incredible people in our community that we look up to, and much, much more. Follow Dustin:  Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com

Kristy Durso, owner of Incredible Memories Travel, is a passionate advocate that everyone should be able to travel, regardless of an individual's unique disability. A full-time wheelchair user since 2019, she has used her own travel experiences (and those of her husband and three children, who also live with disabilities) to dig deeper into the world of accessible travel. Now known as an expert in this niche, Durso has made it her goal to educate other travel advisors and inspire and advocate for travelers from every walk of life. In this episode of Humans of Travel, listeners will hear about Durso's own journey as the wife of a military veteran and mother to three children living with disabilities; her path toward becoming Miss Wheelchair Texas in 2022; and her views on the accessible travel landscape (including what the industry does right, and what it does very, very wrong). Listeners will also hear about Durso's sales process, including the questions she asks clients with accessibility needs, the conversations she has with supplier partners, and the changes she makes to her trip-planning process depending on the type of disability a client has (mobility, cognitive, hearing- or vision-related limitations and more). She also gives advice to other travel advisors who are interested in marketing to clients within the disability community (which encompasses one-fourth of U.S. adults), and the importance of using person-first language and inclusive marketing materials and tactics for reaching this group. Want to learn more about this travel niche? Check out our Travel Agent Guide for Planning Accessible Travel.  RESOURCES MENTIONED IN THIS EPISODE Miss Wheelchair Texas Incredible Memories Travel kristy@incrediblememoriestravel.com    Durso on Instagram: @Kristygoes  Durso on Facebook: Kristy Durso   Accessible Travel Network on Facebook  TravelAbility (creator of the Accessibility Playbook) Durso's Video with Wheel the World A recent movie that Durso likes: The Upside ABOUT YOUR HOST  Emma Weissmann is the Managing Editor of TravelAge West, a print magazine and website for travel advisors based in the Western U.S. She is also the co-host of Trade Secrets, a podcast created with sister publication Travel Weekly. TravelAge West also produces national trade publications Explorer and Family Getaways, as well as events including the Future Leaders in Travel Retreat, Global Travel Marketplace West, the WAVE Awards gala and the Napa Valley Leadership Forum.  ABOUT THE SHOW  TravelAge West's podcast, “Humans of Travel,” features conversations with exceptional people who have compelling stories to tell. Listeners will hear from the travel industry's notable authorities, high-profile executives, travel advisors and rising stars as they share the experiences — the highs and the lows — that make them human.See omnystudio.com/listener for privacy information.

In this episode of "Disability Support And Parenting with Sarah Davies," Sarah engages with Charles and Michael from Film Toledo, an organization dedicated to fostering the local film community. Both guests share their journey in the film industry, starting from independent filmmaking to creating a collaborative network that supports diverse film projects and local talents. The conversation also highlights their roles in Film Toledo, with Charles as the executive director and Michael as the networking coordinator. They discuss the challenges and triumphs of running the organization, the importance of networking, and their efforts to boost the local economy by providing more job opportunities in the film sector. The episode delves into the specifics of Film Toledo's initiatives, including community events and partnerships that aim to enrich the local film scene. It also touches on their involvement in community projects, like the community film festival, which collaborates with local film professionals to help individuals from the disability community bring their creative visions to life. This inclusive approach not only improves the quality of local cinema but also empowers people with disabilities by providing a platform for their voices and stories. Additionally, the discussion covers the broader impact of their work on personal growth and community development, emphasizing the power of film as a tool for advocacy, education, and social connection. This engaging dialogue underscores the transformative potential of inclusive community efforts and the significant role of arts and culture in fostering understanding and cohesion in diverse communities. 

nterviewer: Dr. Lisa Meeks Interviewees: Erin Browkoski, Suzanne Hawks, Karyn LaTurner, Christine Low, Sarah Triano Description In this special episode of the DRP series, we explore the origins and evolution of the Docs With Disabilities Access in Medicine (AIM) program, a vibrant initiative dedicated to promoting accessible and equitable educational environments for students with disabilities in medical education. Our conversation delves into AIM's collaborative partnerships with various organizations and the development of essential resources aimed at breaking down barriers to disability inclusion within medical education. Through engaging stories and real-life triumphs, we highlight the tangible impact of AIM's efforts, seen through the transformative journeys of individual students and the invaluable support networks they discover. Additionally, we shed light on the personal motivations driving AIM's members, emphasizing the significance of shared learning experiences and the collective desire for increased accessibility. By delving into the principles of mutual learning and community solidarity, we underscore the empowering paths taken by students navigating their disability journeys and stress the importance of challenging biases entrenched within the medical field. Our discussion extends beyond individual experiences to explore the broader societal implications and ethical imperatives surrounding disability inclusion. As we delve into the core of AIM's mission, we urge the wider medical community to actively advocate for accessibility and inclusivity, catalyzing meaningful change by amplifying success stories and critically examining prevailing attitudes and beliefs. Furthermore, we extend an open invitation for professionals outside the AIM Working Group to join this vital conversation and contribute to the collective effort of creating a more inclusive future in medicine. Bio's Erin Browkoski Erin has been working in the world of higher education disability services since 2013. She holds a master's degree in clinical mental health counseling and is a Nationally Certified Counselor and Licensed Professional Counselor in Illinois. Erin is a proud graduate of the Docs With Disabilities Initiative (DWDI) Disability Resource Professional Academy. Erin currently serves as Assistant Director of Medical School and Clinical Accessibility at UI College of Medicine for students on all three campuses: Chicago, Rockford and Peoria. Suzanne Hawks Suzanne joined the Center for Learning Access and Student Success at Wake Forest University in early 2018. She received her BS in Psychology from Presbyterian College and spent several years working with children and adults with Autism Spectrum Disorder before joining the field of higher education in 2012. While Suzanne serves students across all programs at Wake Forest, she is the primary contact for students within the School of Medicine. In her spare time, Suzanne enjoys spending time with her family (which includes the cutest little boy in the entire world), really fun friends, and their rescue pit/heeler mix Tommy Boy.   Karyn LaTurner Echols Karyn is a Student Disability and Student Services professional currently serving as the Disability Officer at Rocky Vista University College of Medicine in Ivins, Utah. Her extensive experience includes roles such as Disability Access Consultant at Arizona State University and Associate Director for Student Disability Services at the University of Chicago. She holds a Master of Education from Arizona State University and is multilingual, fluent in English, German, Italian, and conversant in Japanese.   Christine Low Christine serves as the Director of Disability Services at the Icahn School of Medicine at Mount Sinai in New York City. Beyond her role as Director, Christine holds a faculty position in Environmental Medicine and Public Health and serves as Adjunct Faculty at Columbia University, School of Social Work. Christine devotes significant time to disability inclusion efforts for medical education. She is an active member of the Access in Medicine (AIM) program within the DocsWithDisabilities Initiative and from 2016 to 2023 served on the Board of Directors for the Coalition for Disability Access in Health Science and Medical Education. With a national presence, Christine has delivered presentations on various disability-related topics. Her contributions extend to scholarly work, co-authoring significant publications, including "The Performance and Trajectory of Medical Students with Disabilities: Results from the Pathways Project.” She also contributed to the leading text on the topic of disability inclusion in health professions education authoring chapters in "Disability as Diversity" and "Equal Access for Students with Disabilities: The Guide for Health Science and Professional Education, Second Edition."  Christine lives in northern NJ with her husband and her Bernese Mountain Dog, Diesel. Sarah Triano Sarah is the Director of the Center for Learning Excellence at Geisinger College of Health Sciences where she oversees the disability services for the school's nursing, Doctor of Medicine, and master's in biomedical sciences programs. Sarah is the former chair of Access in Medicine (AIM), a program of the Doctors With Disabilities Initiative (DWDI), a working group focused on creating resources and guidance to improve equitable opportunities for students with disabilities and is passionate about creating a welcoming, inclusive, and accessible space for students with disabilities in medicine and health science programs. She now serves as the director of special programs for DWDI.   Transcript: https://docs.google.com/document/d/19szUBxV-8nZOfmkSIxg3R1mkOq5j5iGLUxClqEeClbk/edit?usp=sharing Keywords: DRP, Disability Inclusion, Medical Education, Leadership, Students, AIM, Access, Processes, Specialized Support. Produced by: Lisa Meeks and R.E. Natowicz Audio editor: Nicole Kim and R.E. Natowicz Digital Media: Katie Sullivan and Lisa Meeks

In our second episode, we explore two recent articles focusing on the intersection of the disability community and genetic counseling training and practice.    Segment 1: “Disability education and implications for genetic counselor training”   Lauren Douglas (she/her) serves as an oncology genetic counselor and supervisor for graduate student rotations at MHealth Fairview in Minneapolis, MN. She received a degree in Genetic Counseling from the University of Texas MD Anderson Cancer Center UTHealth Graduate School of Biomedical Sciences in 2021. Outside of work, she finds joy in practicing yoga, enjoying the outdoors, and cheering on her favorite Minnesota sports teams.   Chelsea Wagner (she/her) is a seasoned genetic counselor specializing in prenatal and reproductive health. She is the outgoing chair for NSGC's Prenatal Special Interest Group and serves as reproductive health expert for NSGC's media panel. She is currently a Lead Genetic Counselor at BillionToOne. Chelsea identifies as a person with a disability courtesy of a brain injury acquired in 2019 and her experience living with chronic illness for almost two decades.    Segment 2: “Experiences of genetic counseling students with disabilities and chronic illnesses: A qualitative study”   Rachel Epstein (she/her) is a 2022 graduate of the Boston University Genetic Counseling Program. She is currently working as a genetic counselor in the Neaman Center for Personalized Medicine at Endeavor Health in Evanston, IL, where she works primarily in adult cancer genetics.   During the episode we recommending the following resources: NSGC Member Webinar Series: 2023 Community Conversations  Disability in Genetic Counseling Group on Instagram @disabilitygc or email disabilitygc@gmail.com   Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.  DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian.

Interviewees: Drs. Megan Brown and Jo Hartland Interviewer: Dr. Lisa Meeks Description:  In this episode, podcast co-host Lisa Meeks had the privilege of hearing from Drs. Megan Brown and Jo Harland,  two UK physicians with disabilities, who collaborated on a thought-provoking poem critiquing disability inclusion in the medical field.  In this poem reading, Drs. Brown and Hartland challenge the narrative of "overcoming" and "inspiration porn" often associated with disabled individuals. They emphasize the importance of embracing one's true identity and resisting the pressure to conform to societal expectations. Reminding us that disabled individuals should not have to prove their worth above others and deserve to be valued for who they are. The poem also highlights the ongoing struggle faced by disabled healthcare professionals in securing necessary accommodations in their work environments. It sheds light on the burden placed on individuals to constantly fight for their needs and the importance of organizations recognizing and addressing these challenges.  Listeners will gain deeper insights into the experiences of disabled healthcare professionals and the critical issues surrounding disability inclusion in the medical field.    Bios:  Dr Megan Brown is a Senior Research Associate in Medical Education at Newcastle University, in the School of Medicine, in the UK. She trained as a doctor, but decided to leave practice and has subsequently pursued medical education research. She is multiply disabled – she uses a walking stick, and is neurodivergent. Megan's research has focused on issues relating to the clinical education workforce within the UK, and equality, diversity, and inclusion within this workforce across the spectrum of undergraduate to postgraduate experience. She is a published poet, and is passionate about creative methods of expression and research. Dr Jo Hartland (they/them) qualified from Cardiff University in 2013 and left NHS clinical work in 2018. They have worked at the University of Bristol Medical School since 2018, and are the current School Deputy Education Director for Student Equity Diversity and Inclusion. Their teaching focuses on the integration of marginalised people's voices in healthcare curriculums, and empowering students to be agents of change in the face of health inequity. They sit on the executive board of the UK Medical Schools Council EDI Alliance, with a focus on LGBTQ+ inclusion and reasonable adjustments for disability. Their research interests lie in the intersection of professionalism and how this can act as a gatekeeping device for marginalised communities accessing healthcare careers. Outside of their university work Jo is a queer health activist and lead author of the GLADD UK Charter on So-Called LGBTQ+ ‘Conversion Therapy'. In 2022 they received the NHS England LGBTQ+ Health Advisor Award and Attitude magazine's 2023 Pride Award. Transcript Keywords:  World Poetry Day UNESCO Medical Education General Medical Council Equality Disability inclusion Medical School LGBTQ+ Conversion therapy Disability community Ableism Reasonable adjustments Equality Act Trauma Joy Resilience Advocacy Policies Documents Produced by: Gabe Abrams and Lisa Meeks  Audio editor: Jacob Feeman Digital Media: Katie Sullivan

The disability community is reeling after the government moved to narrow access to funding. Whaikaha, the Ministry of Disabled People, issued new rules for accessing financial support in a Facebook post yesterday. Political reporter Anneke Smith has more.

J.R. Larson, Director of Business Development for Laura Baker Service Association, talks about a meeting to be held by the city on March 14, 4-6pm, at LBSA to discuss parts of the City’s comprehensive plan that affect persons with disabilities. For more information, visit the city’s website.

Hello Brave Friends! This is another Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! Today we're discussing the topic of comparing. Whether it's our stories, our parenting styles or our child's outcomes, comparing, it seems, is just human nature. It's a tool we use to identify and connect with others who are like us but can also turn competitive and ugly. How do we support and honor each other's journey's without feeling better or worse off than our sisters? Whether you have questions as a parent to a child with complex medical or mental health needs or you're someone looking to support a care-giving parent, we would LOVE to hear from you. If you have any topic requests or if you would like to ask a question, leave us a message here.Find more information about Life Coach, Susanna Peace Lovell here.Find more information about Kimberly Kooy, LMFT here.  Find the UNSEEN list of ways you can support care-givers here. Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. JOIN the international community of We Are Brave Together here.Donate to our Retreats and Respite Scholarships here.Donate to keep this podcast going here.Can't get enough of the Brave Together Podcast?Follow our Instagram Page @wearebravetogether or on Facebook.Feel free to contact Jessica Patay via email: jpatay@wearebravetogether.orgIf you have any topic requests or if you would like to share a story, leave us a message here.Please leave a review and rating today! We thank you in advance!Disclaimer

The significance of the Hunger Games movie in the Disability Community

To get the latest from Diego Mariscal, you can follow him below!LinkedIn - https://www.linkedin.com/in/diego-mariscal-6363787a/Check out Diego's Tedx Talk here - https://www.youtube.com/watch?v=JVG94W0gBPcWatch Diego's GMA segment - https://www.goodmorningamerica.com/GMA3/video/organization-support-disabled-people-mentorship-101872639Keely Cat-Wells  - https://www.linkedin.com/in/keelycatwells/ Sign up for Marcia's newsletter to receive tips and the latest on Angel Investing!Website: www.marciadawood.com And don't forget to follow us wherever you are!Apple Podcasts: https://pod.link/1586445642.appleSpotify: https://pod.link/1586445642.spotifyLinkedIn: https://www.linkedin.com/company/angel-next-door-podcast/Instagram: https://www.instagram.com/theangelnextdoorpodcast/TikTok: https://www.tiktok.com/@marciadawood

This time on Code WACK! What challenges do people living with disabilities face when it comes to accessing quality health care? And are they being included in decisions about health policies that affect them? To find out, we spoke with Angela Gardner, a disability rights advocate who lives in the Los Angeles area. Her work focuses on helping people with disabilities in the areas of employment, education, healthcare, services and support to live independently in the community. This is the first of two episodes with Angela. Check out the Transcript and Show Notes for more!