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Cherese Sandrock (Executive Director) and Greg Coni (Board President) of the Down Syndrome Association of Pittsburgh joined the podcast today to let us know about what's coming up for our local Pittsburgh community in 2025! Down Syndrome Association of Pittsburgh (DSAP)https://dsapgh.org https://facebook.com/dsapgh E-mail: info@dsapgh.org Phone: 412-997-2297 If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and the site hosting for this podcast.
This week on Waves of Awareness, Alecia Talbott joins us from the Down Syndrome Association of Middle Tennessee (DSAMT). Alecia is the current Executive Director of DSAMT and an advocate for the Down syndrome community. Alecia tells us her personal journey as a mother to a son with down syndrome and the experiences she's gone through that have furthered her passion as an advocate for inclusion and acceptance for those with Down syndrome. Matt, Norris, and John all take turns asking Alecia about the mission of DSAMT, key programs they help bring the community closer together, and what kind of message DSAMT hopes listeners take from this conversation. Listen to the full interview, including updated from Matt, Norris, John, and Staci on their life and the Waves community. ________________________________________ To learn more about Waves, go to: wavesinc.com To learn more about the Down Syndrome Association of Middle Tennessee, visit: https://somethingextra.org/ To watch Waves of Awareness on Youtube go to: https://www.youtube.com/@Waves_of_Awareness Follow Waves of Awareness on Instagram at @waves_awareness_pod To learn about Spread The Positive go to: https://spreadthepositive.net/
In Season 2, Episode 10 we sit down with one of the Down Syndrome Association of South Texas' newest Board Members, Oralia Lara-Vargas, and discuss her time with DSASTX, and all her work within Special Education. During the episode, we introduce and discuss more details and information regarding our 2025 DSASTX Education Conference. If you want to know more about our upcoming conference, take a listen to this month's episode! The 2025 DSASTX Education Conference is January 31, 2025! Be sure to check out our website at dsastx.org for more info and to get registered! We hope you enjoy this month's episode, and thank you to Oralia for chatting with us, and we thank her for all the time and support she has given to the DSASTX and our community throughout the years! We also hope the Texas Down Syndrome Chat supports, educates, and inspires our listeners, whether you have Down syndrome, or know someone who does. Please follow us on Instagram, Facebook, Twitter, and TikTok @DSASTX or visit our website at dsastx.org to send us questions, comments, or suggestions regarding our podcast, and even what you would like for us to talk about next!
In today's podcast, we are looking at life for people with Down Syndrome in Africa. Down Syndrome is a genetic condition where a person is born with an extra chromosome; they'll have an extra copy of chromosome 21, making 47 chromosomes instead of the usual 46. It alters the development of the body and brain, leading to delays in areas like speech. In Africa, people with the condition often face additional barriers, a shorter life expectancy because of limited healthcare, delayed diagnosis, and scarce support systems. Opportunities for education and employment can also be hard to come by which exacerbates the stigma they experience. So, what can be done to begin to change this? Africa Daily's Alan Kasujja hears from Eunice Koros, a Kenyan mother, and her son Ivan Kiprono, a 26-year-old man with Down Syndrome who works at their family factory. He also speaks to David Maxwell, Project Manager for the Down Syndrome Association of Ghana, who shares how witnessing his sister's life with the condition inspired him to advocate for change.
Following last week's episode on the great work being done by the Down Syndrome Association of Greater St. Louis, check out the inspiring father-son duo behind John's Crazy Socks, Mark X. Cronin and his son, John. Together, they share their extraordinary journey of building a multi-million-dollar social enterprise with heart. John, who has Down syndrome, never let it hold him back. From starting their sock venture to now being globally recognized advocates for inclusive hiring, they show us how purpose-driven entrepreneurship changes lives. Get ready for a conversation filled with laughter, touching stories, and powerful insights on why hiring people with differing abilities isn't just the right thing to do—it's great for business.Guest Links:Mark's LinkedInJohn's Crazy SocksCredits: Host: Lisa NicholsExecutive Producer: Jenny HealMarketing Support: Landon Burke and Joe SzynkowskiPodcast Engineer: Portside Media
Sit back and enjoy listening to two remarkable guests, Erin Suelmann, Executive Director of the Down Syndrome Association of Greater St. Louis, and Susan Conrad, an experienced consultant. Together, they dive into the collaborative journey of shaping the Down Syndrome Association's strategic vision. As members of the Strategic Planning Committee, Lisa, Erin, and Susan share insights on impactful leadership, meaningful community service, and the power of thoughtful planning to make a lasting difference. Don't miss this inspiring conversation that celebrates partnership and purpose.Guest Links:Erin's LinkedInSusan's LinkedInDown Syndrome Association of Greater St. LouisEicon PartnersCredits: Host: Lisa NicholsExecutive Producer: Jenny HealMarketing Support: Landon Burke and Joe SzynkowskiPodcast Engineer: Portside Media
The LFX Media conversed with Craig Woodard Sr. about the recent storm in Houston and his upcoming podcast. Craig and his wife will do a podcast called Excetera with The Woodards. The second podcast is with the Vice President of The Down Syndrome Association of Tampa Bay Drew Garabo.
This week we got out-broadcasted on Happy Half Hour, and we couldn't be more honored to pass the torch, to, as Troy dubbed it, “the best monosyllabic baseball broadcast duo in the major leagues.” The crew went to Petco Park ahead of the start of the Padres/Rockies series to chat with the voices of the franchise, Don Orsillo and Mark Grant (the Friars lost last night, but there's another game beginning as I type. Go Padres!). Orsillo and Grant are better known to the masses as Don and Mud, the announcers of our beloved Major League Baseball franchise. The voices of the Friar Faithful, or, as we like to call it, two brotherly types yukking it up as if they were hanging out on a fishing pier, or, as so many fans like to imagine, in our own living rooms. Mud's been with the team as PadresTV's color analyst for 29 years, since 2024. He actually pitched for the Padres from 1987 to 90, and was originally selected by the San Francisco Giants with the 10th pick in the first round of the 1981 Draft out of Joliet (IL) Catholic High School. He played parts of eight Major League seasons with San Francisco, San Diego, Atlanta, Seattle, Houston and Colorado before retiring from the sport 1995 and beginning his broadcasting career as a sports anchor at KMFB Radio, eventually moving to the Padres airwaves over time. Outside of baseball, he's a passionate advocate for the Down Syndrome Association of San Diego, as well as the Cystic Fibrosis Foundation of San Diego and St. Madeleine Sophie's Center in El Cajon. Orsillo, beloved throughout the country and the MLB for his 15-year-long tenure at the Red Sox before joining the Padres in 2016, also calls nationally broadcasted MLB games for FOX, FS1 and TBS during the regular season. His numerous accolades include five Emmy Awards for outstanding play-by-play (2003 and 2004 with Boston, 2018, 2019 and 2022 with the Padres) and two New England Sports Best Play-by-Play awards (2014 and 2015). The current Coronado resident and lifelong broadcaster was named Massachusetts Broadcaster of the year twice in 2005 and 2015, and, through his role with the Red Sox, has also appeared in a few movies, including 2013's The Heat, 2010's The Town and 2005's Fever Pitch. Orsillo is also, we learn in this episode, a cult-famous home cook, regularly cooking for friends and enjoying his wares so much that–we also learn!!—he has never tried Petco Park stadium food. No Cardiff Seaside Market tri-tip, no An's Dry Cleaning Gelato. Nary a Board-n-Brew Turknado in sight. He tells us that it's hard to get up, considering his job requires him to be tied to a mic. But the real reason he doesn't dabble in Petco's many incredible food options is that he's such a good cook, he just doesn't really need to eat anyone else's food (which we respect on this here food podcast). Unable to resist the obvious temptation at hand, and being the friendly trolls that we are, Mud, along with the hosts, ushers Orsillo into his first-ever stadium bite on this show. I won't spoil the goods here, but it's worth tuning in to find out because it includes a fried fusion mash-up dish that's likely to become a Petco Park food icon after this season ends. There's a lot more brotherly banter to go around, and the truth is it's best heard wherever you listen to your podcasts, and probably not in this written post, owing to the fact we are talking to some of the most celebrated broadcasters in the game. But we also talk the news: CH is bringing pan-Middle Eastern cuisine to North Park, Rancho Valencia is launching a summer dinner series with newly minted Michelin-starred Baja chef Javier Plascencia, as well as Fauna's David Castro Hussong, and Izola is staying in East Village by opening its new, enormous Fault Line Park storefront soon.
Friends, we put, “I'm A Really Good Mom” on a t-shirt because we know moms doubt this truth about themselves daily. Today in honor of Mother's Day we're celebrating the importance of community, friendship, and advocacy with our friends Kelli Caughman and Crystal Lotterberry! Kelli & Crystal are the founders of the Black Down Syndrome Association and they're here to have an unfiltered conversation about the messy and beautiful parts of being a mama! We're chatting about how Down syndrome has influenced our perspective on life and motherhood, our advice for those feeling overwhelmed, what we shouldn't have worried about (or if we ever worried), and so much more! Being a mama is the hardest and best, we want you to know you're doing a good job. Now say it with us, “I'm a really good Mom!” --- SHOW NOTES Follow Black Down Syndrome Association (BDSA) on Instagram and Facebook Learn more about the Black Down Syndrome Association Join the Black Down Syndrome Association Facebook Family Group More episodes with our friends from BDSA!: 58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman 195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! MICHA'S NEW BOOK Pre-order Micha's new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-order's purchased through Baker Book House receive a signed copy with a lucky few temporary tattoo!) DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support
Join us as we talk with Ashley Olthoff from the Down Syndrome Association of Minnesota. She is the Director of the Family Connector Program, set up to help families feel more connected and be more equipped to navigate systems and access resources. For more information, please visit:https://dsamn.org/
The Weekend Whassup for Friday 1/12/2024! The Point keeps you connected to the top 9 things happening around Sheboygan! Stayin' Alive: One Night of the Bee Gees biggest hits will make you wanna boogie tonight (Friday) at 7:30 on stage at The Weill Center For The Performing Arts in downtown Sheboygan. https://wxerfm.com/events/387076/ The Kohler Fire Department & Sheboygan Moose Lodge invite you to a huge Brat Fry Fundraiser tomorrow (Saturday) from 11-6! Brats, burgers, steak sandwiches, fries, curds, raffles and more! https://wxerfm.com/events/406664/ Be a part of the Winter AutoCross Series at Elkhart Lake's Road America, tomorrow (Saturday) from 8-5. https://www.facebook.com/events/364850302881426 Play 50/50 Bingo to support Paws Up Pet Rescue tomorrow (Saturday) from 1-4 at Racer's Hall in Plymouth! Win half the pot for a great cause! https://www.facebook.com/events/758969199394164 It's Frozen Fairways Country Music Weekend at Blackwolf Run in Kohler. Live music direct from Nashville Friday and Saturday evening! http://tinyurl.com/5n8sd9bw The Down Syndrome Association of Wisconsin - Sheboygan and Surrounding Counties invites you to A Night At The Museum tomorrow (Saturday) night after 5 at Above And Beyond Children's Museum in Downtown Sheboygan. Pizza, snacks and more! https://forms.gle/ZWcXW52Cw3LBMEoN8 There's a Lantern Lit Snowshoe Hike planned at the Ledgeview Nature Center near Chilton tomorrow (Saturday) night from 5-7. Bundle up and bring the family out to enjoy a self-guided night time snowshoe hike on lantern lit trails. https://www.facebook.com/events/367071312376970 Join the Marcus Sheboygan Cinema for the kick off to the Kids Winter Dream Family Film Series this weekend with The Super Mario Bros. Movie! Tickets are $3 per person! http://tinyurl.com/2hs5mfcu Fighting Together - Nikki's Cancer Warriors invite you to a benefit fundraiser Sunday from 11-4 at 3 Sheeps Taproom in Sheboygan. Raffles, food, drinks, and music! https://www.facebook.com/events/1279047472762395 See omnystudio.com/listener for privacy information.
Kevin Sussman (Big Bang) and Stuart Jenkins (Nerdist) were former roommates now duking it out in four rounds of trivia for charity. Kevin is playing for ASPCA and Stuart is playing for Down Syndrome Association of LA. Get out your paper plate to keep score for your questions about Seinfeld, the Solar System, Charlie and the Chocolate Factory and more! Rate, subscribe and review @youshouldknowbetterpod - The Trivia Podcast.This show is part of the Spreaker Prime Network, if you are interested in advertising on this podcast, contact us at https://www.spreaker.com/show/4953069/advertisement
In today's episode of the Raising Kellan podcast, Marsh interviews Lori Green, the Executive Director of the Down Syndrome Association of Memphis and the Mid-South. Their mission is to empower and advocate for individuals with Down syndrome. Lori also talks about the various programs and services they offer, such as self-advocate classes, tutoring, and social events. She mentions their upcoming fundraiser, the Step Up for Down Syndrome Walk, which will take place on October 29, 2023. Timeline: 2:10 Lori's background 3:38 Tennessee transitioned from institutionalization to community-dwelling for persons with disabilities. 4:17 Services provided by DSA of the Mid South. 10:02 Service area of DSA. 11:49 Is DSA an affiliate or chapter organization? 14:18 October is Down Syndrome Awareness Month and Oct 29 is STEP UP Walk for Down Syndrome. 17:26 Closing Remarks. --- Send in a voice message: https://podcasters.spotify.com/pod/show/marsh-naidoo/message
WYCE's Community Connection (*conversations concerning issues of importance in West Michigan)
In this week's episode, we spoke with Melissa Perrin, Program Director with The Down Syndrome Association of West Michigan ( Melissa told us that the Down Syndrome Association of West Michigan (DSAWM) was formed in 1985 by six couples who had children with Down syndrome. Their original aim was to provide support and share knowledge with other families. Through the years, the goals of the Association have broadened to encompass advocacy, public awareness, and the distribution of information relevant to Down syndrome. We also spoke about some of the celebrations associated with World Down Syndrome Day. Online: Down Syndrome Association of West Michigan
Jimi Vaughn has over a decade of experience working for top global brands in the entertainment industry where he leads company-wide Diversity and Inclusion strategy. He has worked for companies such as The Down Syndrome Association of Los Angeles, Company 3, Deluxe Media, Warner Bros., ViacomCBS, NBCUniversal, Fox, Nestle, Bunim/Murray, and 19 Entertainment. Connect with Jimi: @jimi_vaughn Ready to start your journey to self-love and create the life you deserve? Then this is the episode for you. ⬇️ START HERE Free Newsletter + Self-Love Guide: https://bit.ly/3GBUS0w ⬇️ Use ‘POD10' for 10% off all Courses & Merch COURSES: https://candywashington.com/courses MERCH: https://bit.ly/43nFCgf ⬇️ Coaching, Community, and Exclusive Episodes: Soft Life Patreon: http://bit.ly/40eP0BK ⬇️ Connect & Shop TikTok: https://www.tiktok.com/@candy.washington Amazon Storefront: https://amzn.to/3PosnrS Instagram: http://bit.ly/2ws0Izy ⬇️ Reach Out Email: assistant@candywashington.com * Disclaimer: This Podcast and YouTube channel supplement your self-care practices and are not a substitute for a relationship with a licensed professional. --- Send in a voice message: https://podcasters.spotify.com/pod/show/candy-washington/message
Kelli Caughman and Crystal Lotterberry, founders of the Black Down Syndrome Association joined the podcast today to share their stories and how they led to the creation of this fantastic organization. For more information, go to https://www.blackdownsyndrome.org/. Co Founders Kelli.Caughman@blackdownsyndrome.org Crystal.Lotterberry@blackdownsyndrome.org General : info@blackdownsyndrome.org Website: https://urldefense.com/v3/__http://www.blackdownsyndromeassociation.org__;!!NHLzug!Jens2WEhVCCYLfIdP8YfAZZL2e3J9VtxzHLRMGaBEeo4Y8XCzOmQuNNFPsznPPC2ctWNHlhttYiJRULC3ODChWtDt-606QDzbgGnUw$ Instagram: @blackdownsyndrome Public Facebook Page: https://urldefense.com/v3/__https://www.facebook.com/profile.php?id=100085879436043&mibextid=LQQJ4d__;!!NHLzug!Jens2WEhVCCYLfIdP8YfAZZL2e3J9VtxzHLRMGaBEeo4Y8XCzOmQuNNFPsznPPC2ctWNHlhttYiJRULC3ODChWtDt-606QBgGl_ZPQ$ Private Online Support Group for Black Families: https://urldefense.com/v3/__https://m.facebook.com/groups/bdsafamily/?ref=share&mibextid=S66gvF__;!!NHLzug!Jens2WEhVCCYLfIdP8YfAZZL2e3J9VtxzHLRMGaBEeo4Y8XCzOmQuNNFPsznPPC2ctWNHlhttYiJRULC3ODChWtDt-606QA_0quPvg$ Black Down Syndrome Association PO Box 365 Fortville, Indiana 46040 Zeffy Donation: https://urldefense.com/v3/__https://www.zeffy.com/en-US/donation-form/dabaf1dd-803c-4686-8cce-de687a744f7f?fbclid=IwAR2UrDxPS0AySPI_a5NYLt0CnlsY4AXUvewzjq8kXnccpx1wrskxdjrfjAk&mibextid=Zxz2cZ__;!!NHLzug!Jens2WEhVCCYLfIdP8YfAZZL2e3J9VtxzHLRMGaBEeo4Y8XCzOmQuNNFPsznPPC2ctWNHlhttYiJRULC3ODChWtDt-606QC5bneb7Q$ If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.
Educators know mental health must be treated like physical health - it's a basic need that must be met for students to be able to successfully learn and grow in our schools. But, since even before the pandemic, there's been a growing mental health crisis among children. Dr. Ariana Hoet, executive clinical director for Nationwide Children's Hospital's On Our Sleeves program, joins the Ohio Education Association for this episode to discuss factors that contribute to the crisis, what can be done to support students in schools, and the resources available to help educators help kids. In this episode, we also hear some of the message and a new resolution from the Ohio House of Representatives that was shared with educators as part OEA's first-ever Public Education Matters Day celebrations across the state.IMPORTANT RESOURCES | Click here to learn more about On Our Sleeves, and check out some of the following resources for educators: GoNoodle: https://www.gonoodle.com/tags/L2nZb2/all-the-feels Teacher curriculums: https://www.onoursleeves.org/mental-wellness-tools-guides/educator-sign-up Sign up for teacher listserv: https://www.onoursleeves.org/sign-up (just click educator) Follow On Our Sleeves on Instagram at @onoursleevesofficial and On Our Sleeves on Facebook. SUBSCRIBE | Click here to subscribe to Public Education Matters on Apple Podcasts or click here to subscribe on Google podcasts so you don't miss a thing. And don't forget you can listen to all of the previous episodes anytime on your favorite podcast platform, or by clicking here.MORE DETAILS | Click here to learn more about the Public Education Matters Day celebrations around the state. Featured Public Education Matters guests: Dr. Ariana Hoet, PhD, On Our Sleeves Executive Clinical Director Ariana Hoet, pediatric psychologist at Nationwide Children's Hospital and executive clinical director of On Our Sleeves, is the driving force behind its mission of providing educational resources that break stigmas, increase mental health literacy, and support children's mental health. Dr. Hoet believes all children and families should have a fair opportunity to be as healthy as possible. That enthusiasm extends into her desire for making sure that people of all backgrounds are accepted and celebrated – a passion born from her own experience as an immigrant to the U.S. from Venezuela. Her work in this arena led her to being recognized as a Distinguished Hispanic Ohioan by the Ohio Commission on Hispanic/Latino Affairs and an “EXTRAordinary” Volunteer by the Down Syndrome Association of Central Ohio for her work within the Spanish-speaking community. Dr. Hoet works in Pediatric Primary Care where she serves primarily Latino and Somali immigrant children. She is also a clinical assistant professor of Pediatrics in the Department of Pediatric Psychology and Neuropsychology at Nationwide Children's Hospital and The Ohio State University, with a role in training the next generation of behavioral health professionals who will tackle the emerging mental health crisis in children. Dr. Hoet has become a go-to national expert for outlets including USA Today, CNN, Good Morning America, and Newsweek because she is a vital public voice for youth mental health, and also because she has made an impact on countless young lives in her clinical practice. The work of On Our Sleeves and Dr. Hoet helped draw U.S. Surgeon General Dr. Vivek H. Murthy to Nationwide Children's in October of 2022 to discuss the county's growing pediatric mental health crisis. In panel discussions before central Ohio business executives at Nationwide Children's, and with hundreds of college students at Otterbein University, Dr. Hoet and Dr. Murthy spoke passionately about addressing often-misunderstood mental health challenges. Dr. Hoet is the proud mom of a toddler and enjoys family time, dancing, and Ohio State football. She is also involved in Latino community events, both personally and professionally. Dr. Hoet is the co-founder and vice president of Parenting Culture, a national non-profit for culturally responsive and inclusive parenting resources and a board member of Proyecto Mariposas, the Columbus non-profit serving Latina mothers and daughters. She received her bachelor's degree in psychology from The Ohio State University and a doctorate in clinical psychology from the University of North Carolina-Greensboro. She completed her residency at The University of Colorado School of Medicine and a post-doctoral fellowship at Akron Children's Hospital. Jeff Wensing, Ohio Education Association Vice PresidentA high school math teacher in Parma City Schools, Jeff Wensing has been a public education advocate and leader for more than 30 years. Jeff served as President of the Parma Education Association from 2012-2018 and as President of the North Eastern Ohio Education Association (NEOEA) from 2016-2018. One of Jeff's accomplishments as a local and district leader was organizing members and the community to elect a new Parma Board of Education majority in 2017.Jeff has served on OEA's Constitution and Bylaws Committee and President's Cabinet, as Vice Chair of OEA's District Leaders Council, and as a member of the Fiscal Fitness Review Committee and Systemic Practices Committee.Since his election as OEA Vice President in 2019, Jeff has continued to emphasize the importance of organizing members throughout the state. He believes the OEA must support locals in order to both maintain and grow membership.Jeff believes it is critical to listen to members before decisions are made, ensure communication throughout the process, and engage in full transparency. In his second term as Vice President, he has continued to focus on the OEA's strategic issues, shared values, and the students members work with each day. Connect with OEA: Email educationmatters@ohea.org with your feedback or ideas for future Public Education Matters topics Like OEA on Facebook Follow OEA on Twitter Follow OEA on Instagram Get the latest news and statements from OEA here Learn more about where OEA stands on the issues Keep up to date on the legislation affecting Ohio public schools and educators with OEA's Legislative Watch About us: The Ohio Education Association represents about 120,000 teachers, faculty members and support professionals who work in Ohio's schools, colleges, and universities to help improve public education and the lives of Ohio's children. OEA members provide professional services to benefit students, schools, and the public in virtually every position needed to run Ohio's schools. Education Matters host Katie Olmsted serves as Media Relations Consultant for the Ohio Education Association. She joined OEA in May 2020, after a ten-year career as an Emmy Award winning television reporter, anchor, and producer. Katie comes from a family of educators and is passionate about telling educators' stories and advocating for Ohio's students. She lives in Central Ohio with her husband and two young children. This episode was recorded on September 20 and September 30, 2023.
Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Clinic To You (DSC2U) to discuss their collaboration in supporting Spanish-Speaking families that have a member with Down syndrome. DSC2U: www.DSC2U.org DSALA: www.DSALA.org DSALA Contact: (818) 786-0001 info@DSALA.org NOTES FROM DR. SKOTKO: We have written a summary paper for the lay audience to help them access and understand all of our research findings (available in English and Spanish). We have created ready-to-go Facebook posts (English and Spanish) and Twitter posts (English and Spanish), summarizing our research findings. We also developed this Awareness Building event toolkit, so that Down syndrome groups can continue to host meaningful diversity dialogues in their community. We provide ready-to-go materials and easy action steps. Albert Pless and I gave Grand Rounds at UCSF Benioff Children's Hospital and our own MGH Genetics Division about our research findings. The recording for this presentation is available for viewing. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/01/159-dsala-and-dsc2u/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
DSAW or Down Syndrome Association of Wisconsin has a very cool outreach program, among many other services they provide to families who receive a down syndrome diagnosis. In many cases, the outreach from DSAW is the first congratulations parents hear. Vince has a conversation with Rachel Wright from DSAW
The Down Syndrome Association of the Heartland’s annual Buddy Walk is coming up September 30, 2023.
For nearly five years, our Women of Influence podcast has featured conversations with some of the most influential female executives in Central Ohio. This year, Columbus Business First decided to take things a step further with the launch of our inaugural Women of Influence Awards.We fielded 126 nominations, ultimately honoring 27 outstanding women in six categories: nonprofit leaders, community champions, entrepreneurs, trailblazers, mentors, and a rising star, along with Businesswoman of the Year, OhioHealth's Karen Morrison. We encourage you to check out our July 14th print edition for short profiles of each honoree and an extended Q&A with Karen. During our July 12th awards event, I sat down for brief chats with three of our honorees:Merry Korn, CEO and Founder of Pearl Interactive Network; Kari Jones, President & CEO of the Down Syndrome Association of Central Ohio; and Emily Foote, Area Manager for Bechtel Corp.Listen on to hear what they had to say; and stay tuned for my onstage conversation with our keynote speaker, Bath and Body Works CEO Gina Boswell.Mentioned in this episode:Let Crate Media help uncover your company's story and amplify your messaging with a branded podcast. Get a free one-hour casting session at crate.media/cbf
Education Manager Discusses Importance of Inclusion in SchoolsAbout The Guest(s)Luvy Jenkins is the Education Manager and Medical Outreach Manager at the Down Syndrome Association of Central Texas (DSACT). With a background in special education, Louie is passionate about promoting inclusion and providing resources and support to educators and families of children with Down syndrome.SummaryLuvy Jenkins, Education Manager at the Down Syndrome Association of Central Texas (DSACT), discusses the importance of inclusion in education and the barriers that families face in achieving inclusive education for their children with Down syndrome. Luvy highlights the need for support and training for teachers, as well as the role of school administrators in promoting inclusion. She also shares her experience working at the RISE School, an inclusive preschool that values diversity and fosters social-emotional growth in all students.Otter.ai Transcript: https://otter.ai/u/CVrpixuuv2CMxLFVOkS13nGBnkgKey TakeawaysInclusion is a human right and should not be earned.Research shows that school achievement and post-school outcomes are positively correlated with inclusive education.Lack of time and support for teachers is a major barrier to inclusion.Preschool is a critical time for laying the foundation of inclusive education.School administrators play a crucial role in promoting inclusion and providing support for teachers.LinksDSACT: http://dsact.org/Rise School - Austin: https://riseschoolaustin.org/MCIEEmail List: https://bit.ly/MCIE-Email-ListWebsite: https://www.mcie.org/Facebook: https://www.facebook.com/inclusionmdInstagram: https://www.instagram.com/inclusionmd/LinkedIn: https://www.linkedin.com/company/inclusive-education/ Hosted on Acast. See acast.com/privacy for more information.
Down Syndrome Association of the Heartland’s annual golf fundraiser will happen July 14, 2023.
About Julie Julie is a wife and mother. When she and her husband had fertility issues and their next step was IVF, they discussed the possibility of adoption and the opportunity to adopt their daughter, Clara, fell into their laps. They were told Clara would have Down Syndrome before she was born. They said "yes!" by agreeing to parent her and be her voice. Julie and her husband became involved in Down Syndrome Association of Middle TN (DSAMT) which supports 40 counties in Middle TN. DSAMT provides resources such as IEP help, education training, and advocacy. Additionally, their "first call" program helps them reach new parents providing a celebration bag for new families to celebrate their new addition and "sunshine bags" help by bringing a smile when families are dealing with serious ailments. Favorite Quotes "[The Bible says}, always be strong and courageous. And that's what I've always relied on." - Julie West
Down Syndrome Association of the Heartland Executive Director Tonya House talks about the significance of World Down Syndrome Day and celebrating it by rocking your…
Communicare spokesperson Kristy McGrew and Down Syndrome Association of the Heartland Executive Director Tonya House explain what the Yellow Napkin Campaign is and how it…
Baby it's COLD outside...or at least it was for a few days. The boys eventually warmed up and went out for another busy week. John and Mark attended the book launch for Steve Distante's Pitchology. Plus they had a chances to catch a few movies, including 80 for Brady! In the big news of the week, it's been just about a year for the podcast and we're happy to continue spreading happiness to all of our followers. Did you know that most podcasts don't make it past 6 episodes? Not us! Plus some of the usual segments like good news, bad jokes and more! Business to highlight: Ky's Kards https://kyskards.com/ (Hanover, MN) – Sept 10th, 2022 – If there was ever a day that was built for a greeting card, it's this Monday September 12th . Monday is the National Day of Encouragement. A mother and son duo from Hanover, MN have built a business helping to encourage others. Penny and Kyle Kauffman started EnKourage Kards. This Twin Cities based family business started both out of necessity and opportunity. You see Kyle has down Syndrome. His Mom, Penny, wanted to encourage him and provide gainful employment. This is not an easy thing. Our family started Ky's Kards (formerly Enkourage Kards) - with a vision to provide a meaningful employment opportunity for Kyle (who has Down Syndrome) and others with different abilities, and to inspire others to spread encouragement and kindness, one card at a time. All of our greeting cards are thoughtfully designed by Kyle's graphic designer sisters, Lindsey and Carly. Each unique design is inspired by Down Syndrome - Trisomy 21. For example, some feature 21 flowers, the 21st chromosome, and even Kyle's unique fingerprint. Ky's Kards is active in the community. A portion of the proceeds from each card sold is donated to the Down Syndrome Association of MN and Special Olympics of MN - two organizations that have had a positive impact on Kyle's life. You can get cards, card packs They are beautiful Finding John's Crazy Socks: https://johnscrazysocks.com/ Hosted by John & Mark Cronin, co-founders of John's Crazy Socks. Visit John's Crazy Socks here: https://johnscrazysocks.com Follow @johnscrazysocks on Facebook, Twitter, Instagram and TikTok. The Spreading Happiness Podcast is produced by Launchpad 516 Studios. For show ideas, guest inquiries, general feedback, sponsorships and media inquiries, drop an email: thespreadinghapinesspodcast@lp516.com Information about Speaking Engagements with John and Mark: https://johnscrazysocks.com/pages/speaking-engagements-1 Subscribe to The Spreading Happiness Podcast on Apple Podcasts and get notified of new episodes, every Tuesday! https://podcasts.apple.com/us/podcast/the-spreading-happiness-podcast/id1611218712
Happy February, friends! We're celebrating Black History Month with two of our favorite mamas (and returning guests!), Kelli Caughman and Crystal Lotterberry. Both of these ladies are raising kids with Down syndrome while running their new non-profit organization: The Black Down Syndrome Association. And friends, the work they're doing is SO good. Today we're talking about the many inequalities Black individuals with DS face, tokenism vs. intentionality, and how we can advocate and support every member of the DS community. Note: we had some technical issues during recording.. but this episode was too good not to air. Thanks for understanding, friends! -- Learn more about the Black Down Syndrome Association on their website Keep up with our guests and the Black Down Syndrome Association Follow BDSA on Instagram Like BDSA on Facebook Follow Kelli Caughman on Instagram Follow Crystal Lotterberry on Instagram Learn more about the theme of this Black History Month, “Black Resistance” HERE Join the Black Families Down Syndrome Network group on Facebook or find the DSDN group that's right for you! Listen to our previous episodes with Kelli Caughman! 58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman 102. "More Than A Moment," w/Kelli Caughman --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support
Bill & Mike Got Your Thursday Up & Running With Cavs Rockets Preview From Cavs PBP Tim Alcorn - Cleveland Beer-Restaurant News From Cleveland.com-Marc Bona - Toni Mullee Executive Director- Down Syndrome Association of Northeast Ohio - Sharenting-The Dangers Of Parents Sharing Too Many Pictures Of Kids - NBC Radio Rory O'Neill will have the latest on the U.S. decision to send sophisticated battle tanks to Ukraine – and reaction from Russia - Digital payments are here to stay, and it looks like some of the biggest banks in the country are teaming up to create an app that will rival Apple Pay-NBC Radio Erin Real
Welcome to our first official episode of the Texas Down Syndrome Chat. Episode 1 is all about introducing the Down Syndrome Association of South Texas with host and Program and Outreach Coordinator, Faith Levario, and our guests, Executive Director, Brian Lopez, and Education Director, Magaly Diaz. We give an insight into who we are and the paths we took that led us to the DSASTX. We talk about what our organization provides for individuals and families living with Down syndrome, and what is yet to come in 2023. We hope the Texas Down Syndrome Chat supports, educates, and inspires our listeners, whether you have Down syndrome, or know someone who does. Please follow us on Instagram and Facebook @DSASTX or visit our website at dsastx.org to send us questions, comments, or suggestions regarding our podcast, and even what you would like for us to talk about next!
Welcome to The Down Syndrome Association of South Texas' official podcast: the Texas Down Syndrome Chat. We are so excited to launch our podcast this year! This episode is a short introduction to the Texas Down Syndrome Chat and what we hope this podcast will bring to all of you. Please follow us on Instagram and Facebook @DSASTX or visit our website at dsastx.org to send us questions, comments, or suggestions regarding our podcast, and even what you would like for us to talk about next!
Natalie Hobbs shares her story of learning that her new baby, Sam, had been diagnosed with Down Syndrome. She talks about how she personally worked through the diagnosis and what it would mean for their family and their new son as well as the joy and happiness that Sam has brought to their family. THIS EPISODE'S PEBBLE: The pebble for this week is to check out one of the following organizations to learn a bit more about Down Syndrome. National Down Syndrome Society - https://ndss.org/aboutNational Down Syndrome Congress - https://www.ndsccenter.org/Down Syndrom Diagnosis Network - https://www.dsdiagnosisnetwork.org/ Jack's Basket - https://www.jacksbasket.org/ Down Syndrome Association of Minnesota - https://dsamn.org/Zion's Army - https://www.zionsarmy.netZoe's Toolbox - https://www.zoes-toolbox.com/who-we-areRESOURCESAffiliate Disclaimer - As an Amazon Associate and member of other affiliate programs, we may earn advertising or referral fees from qualifying purchases. Thank you for supporting Pebbles of Light!Follow Anne:Website: https://annemaxson.com/Facebook: https://www.facebook.com/pebblesoflight Instagram: @PebblesOfLightSupport Pebbles of Light by visiting our sponsors:This is an affiliate link for Betterhelp Counseling Services. I receive a commission when people use this link. Go to https://www.betterhelp.com/pebbles for 10% off your first month of convenient, affordable, and accessible counseling services.Shine Cosmetics: https://www.shinecosmetics.com/?afmc=AnneM10 (**Always get 10% off with code AnneM10)See Good Days Shop: https://see-good-days.myteespring.co/ (**Always get 10% off with code AnneM10 at checkout.)Wholist - Wellness Comes Full Circle: https://whol.me/PebblesofLight
To celebrate Down Syndrome Awareness Month, representatives from the Down Syndrome Association of Pittsburgh (DSAP) joined the podcast today to reflect on their experiences as parents as well as highlight the ongoing work of DSAP. The highlight event of the year is the Buddy Walk which is coming up on October 23, 2022 at Schenley Plaza on the University of Pittsburgh campus. Helpful websites related to the podcast discussion today: DSAP: https://www.dsapgh.org/ or call/text us 4125659936 Pittsburgh Buddy Walk: https://www.ds-stride.org/pghbuddywalk First Call Program: https://www.dsapgh.org/first-call or call/text us 4125524972 FB: https://www.facebook.com/dsapgh IG: https://www.instagram.com/dsapgh LinkedIn: https://www.linkedin.com/company/down-syndrome-association-of-pittsburgh Twitter: https://twitter.com/dsapittsburgh Shannons blog: https://www.thislifewegot.com If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.
Down Syndrome Lots of Socks campaign LOTS OF SOCKS: The focus of Lots of Socks is to raise awareness of Down syndrome in the Galway community during the month of October. This is the 4th year of Lots of Socks and we would like this year's discussion to be focused around Inclusion. Not the kind that exists on paper, in company's/schools' policies and Inclusion token events but the actual reality of families with children with intellectual disabilities. We are asking the Galway community to look at inclusion from a slightly different angle – instead of wondering what can I do? Ask instead - what will I learn from this person? How will my life be enriched by the experience of having a friend with intellectual disability? We are asking you to invite a child or an adult to your social gathering not out of pity or guilt but out of understanding that it is for your own benefit to practice open minded, kind-hearted and non-judgmental relationships. Look at inclusion from a selfish point of view – what will it do for me? You will be surprised
Do you have a local down syndrome chapter? If not then the Down Syndrome Association of Central Texas can help whether you live in Texas or not. This chapter can help you find the resources and information you need. Are you ready to get down!
The Down Syndrome Association of the Heartland is having their biggest fundraisers this Saturday, September 24th. Executive Director Tonya House and Lexi Holsclaw told Brian…
Montana Down Syndrome Association Kalispell Chapter Secretary Cassie Huber and Inclusion advocate/Mama Bear Ginni Weaver joined the KGEZ Good Morning Show with John Hendricks and Robin Mitchell on Monday September 19th, 2022 to talk about M.T.D.S.A and upcoming fundraiser-Buddy Walk, Sunday, October 9th, 2:00 P.M at Lawrence Park.
Welcome back to Season Three! WOA is kicking this season off with one of our favorite co-hosts, Matt “Man” Moore, and special guests Dana and Brent Bythewoods! Waves has a long-time relationship with the Bythewoods; it all started when their daughter, Emily Hope, went through our Early Learning Program. We are so excited to have Dana and Brent on to share a piece of their story and announce all the exciting things they are a part of! Mark your calendars for upcoming events! You can support two incredible organizations on September 15th. Waves is hosting our annual fall fundraiser, Brews & Grooves at Curio Brewing Co. at 6:00 pm. Join us for our first ever writers round, featuring Sam Blasko, Rachel LaRen, and individuals supported by Waves. Penn Station will be donating 21% of its profits from September 15th to the Extra Mile being put on by the Down Syndrome Association of Middle Tennessee (DSAMT). DSMAT organizes The Extra Mile to celebrate and support individuals with Down syndrome and their families and to promote understanding and acceptance of those with Down syndrome. The Extra Mile will be the largest Down syndrome awareness event in the state and their primary source of funding for their programs. Make sure to support team #Emily'sArmy. This year The Extra Mile will be held on Saturday, October 22, 2022, at 175 Peyton Road, Lebanon, TN 37087, on the grounds of the Wilson County Fairgrounds. This podcast is made possible through partnerships with Spread the Positive, TN's Department of Intellectual and Developmental Disabilities, and the Community Foundation of Middle TN. If you like what you hear, share it with a friend and leave a review on any streaming service. Got an idea for a guest, email us at podcast@wavesinc.com. Links referenced in the episode – Season One, Episode 14. https://wavesofawareness.libsyn.com/
It's been three years since Jerica Phillips and I first chatted about sisterhood and balancing motherhood. Now a Verbally Effective alum, Jerica gets a chance to finally open up about the price of popularity and what's next in her career. We discuss mental health, substance abuse, single parenting, new beginnings, special needs advocacy, Serena Williams legacy, and more. A Memphis native and legacy SCS graduate, Jerica earned a Communications and Broadcast Journalism degree from the University of Tennessee-Knoxville. Her accomplishments have catapulted her to a position of trust and admiration. Throughout her career, she has unapologetically advocated for educational equity and access. From becoming a recognizable and credible face in local news to serving as a parent-advocate on the Board of Directors for the Down Syndrome Association of Memphis, to graduating with the 2021 Executive Class of Leadership Memphis and being honored as Top 40 Under 40 Urban Elite Professionals, she has embraced her ability to authentically engage people and uniquely influence stories.
What is going on everyone?? We hope ya'll had a great weekend and are ready to kick off this upcoming school year. For this week's episode we are joined by friend of the podcast lifelong educator, coach and now EPISD's newly appointed Assistant Superintendent Mr. Mark Paz. Mr. Paz joins us in studio to discuss his story becoming and educator and eventually being named the 2020 Principal of the year by EPISD. We had a great time talking to Mark and even got into some crazy ghost stories about El Paso High, where Mark used to to work as Principal of the school. Join us for some laughs and a great time, make sure to subscribe for new episodes dropping every Sunday! This episode we discuss: -Family ties -Becoming an educator and creating a successful career -Challenges facing schools/educators during COVID -Being named the EPISD Principal of the Year at El Paso High -Newly appointed EPISD Assistant Superintendent -Supporting the Down Syndrome Association of El Paso -The rich history of El Paso High/ how haunted is the school? -Amanda disrespects the Choco Taco -Should they bring Zima back? -EA Sports announces the return of the College Football video game -Fan Favorite Five Random Questions presented by Sun City Vibes! and much much more..... As always, thank you for all of the support it means everything to us
The Down Syndrome Association of Greater Richmond is holding their 16th annual Step UP for Down syndrome event on Saturday, October 15, 2022 which includes a 5k, Family Walk, Festival and more! Executive Director Jennifer Case joined Jeff to talk about it.
This conversation explores the dual diagnosis of autism and Down Syndrome with guests Ashley Olthoff of the Down Syndrome Association of Minnesota and Marcy Rede, a parent of a young adult with the dual diagnosis. Ashley helps us understand how traits of individuals with Down Syndrome can overlap with autistic traits. Marcy describes how the parenting path she thought she was on with her daughter diverged and led to her daughter's autism diagnosis. Marcy thoughtfully describes her daughter's "in-between place" in the disability community. Show Notes National Down Syndrome Society page on dual diagnosis and related resources When Down Syndrome and Autism Intersect. Froehike, R.N., Zaborek, Robin. Bethesda, MD: Woodbine House. (2013) Down Syndrome - Autism Connection Down Syndrome Association of Minnesota (DSAMN) where you can find Ashley Olthoff. DSAMN's Autism and Down Syndrome - Minnesota Facebook Group where you can find Marcy Rede Acknowledgements This podcast episode was made possible thanks to a grant from the Minnesota Department of Human Services.
We kick off the show with the debate on if height really matters? We play smarter than your hood and it was a STEAL for Ocala. What food are you "Culturally" supposed to like but you don't. Rae gets hated on because she's Italian and isn't a huge fan of Garlic. We have SIDETAKERS with Jose and Megan... Things got a little uncomfortable when he started blaming some of the drama on her pregnancy hormones. We talk with Mark Tremani about his take a chance for charity that he's promoting here locally for the Down Syndrome Association. Have you seen more road rage around town? Do is frustrate you too!?
We kick off the show with the debate on if height really matters? We play smarter than your hood and it was a STEAL for Ocala. What food are you "Culturally" supposed to like but you don't. Rae gets hated on because she's Italian and isn't a huge fan of Garlic. We have SIDETAKERS with Jose and Megan... Things got a little uncomfortable when he started blaming some of the drama on her pregnancy hormones. We talk with Mark Tremani about his take a chance for charity that he's promoting here locally for the Down Syndrome Association. Have you seen more road rage around town? Do is frustrate you too!?
1K Letter of the Day and Daniel from the Down Syndrome Association of Greater Cincinnati...
You know when you and your bestie speak the same language? That's how it is when Traci Brewer and I get together, especially if Parent Involvement is the topic of conversation! Traci, the executive director of the Down Syndrome Association of Central Kentucky, joins me on this week's podcast episode to talk about Parent Involvement - why it's important and HOW to actually get involved in your child's school community. You're guaranteed to pick up at least a couple pointers in this helpful, important episode! Oh, and we may spend a wee bit of time celebrating World Down Syndrome Awareness Month, March!!!
We're back with another episode recorded at the World Championship Gumbo Cookoff in New Iberia, Louisiana. Our guest is Tony Piontek with the Down Syndrome Association of Acadiana. Tony loves gumbo so much he spent his weekend volunteering to help put on the Gumbo cookoff. Enjoy the episode!