Podcasts about research ethics

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the methodology, ethics, and future of public opinion research with David Dutwin, PhD, Executive Director and Senior Vice President of AmeriSpeak at NORC at the University of Chicago. Dr. Dutwin is a senior fellow with the program for opinion research and election studies at the University of Pennsylvania. He is a nationally recognized survey methodologist. For more than 20 years, he has taught courses in survey research and design, political polling, research methods, rhetorical theory, media effects, and other courses as an adjunct professor at the University of Pennsylvania, the University of Arizona, and West Chester University. He discusses how probability-based sampling underpins scientifically valid survey research, the safeguards that protect participants in sensitive surveys, and how artificial intelligence is reshaping the field. 

What happens when a researcher's own story becomes part of the data? And how do you ethically navigate moments when participants' emotions – joy, frustration – surface in the interview process?In this episode, Dr Hakan Ergül speaks with Stephanie Hoi-Ying Chan, a PhD student at IOE. Stephanie's doctoral research explores the lived experiences and professional identity development of primary music teachers in Hong Kong.Drawing on her background as a classically trained musician and former primary music teacher, Stephanie reflects on the ethical tensions of managing multiple identities in the field, handling emotionally charged interviews, and translating rich Cantonese narratives into English without losing meaning or voice.Full show notes and links: https://www.ucl.ac.uk/ioe/news/2026/may/between-identities-emotions-and-ethical-practice-fieldwork-research-ethicsMore IOE Insights podcasts: https://uclioe.info/podcastUCL Institute of Education: https://ucl.ac.uk/ioe

Universities now serve industry over public good, allowing corporate sponsors to own data, ghostwrite studies, and influence journal publications. #AcademicCorruption #MedicalJournals #Transparency

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the inclusion of individuals with disabilities in research with Nancy Olson, JD, IRB. Olson serves as an analyst at the University of Nebraska Medical Center and is the recipient of PRIM&R's 2024 Service Award. Drawing on more than two decades of experience in human research protections and her own lived experience as a person who became deaf, Olson discusses how assumptions about disability shape — and often limit — who gets to participate in research. She examines the responsibilities of both researchers and IRBs in designing accessible studies and calls for a shift from compliance-focused thinking to genuine participant-centered preparation. 

Modern medicine is not shaped by science alone. It is shaped by ethics, trust, and the difficult decisions made when technology moves faster than society can understand it.In this episode of Research Renaissance, legendary bioethicist Dr. Art Caplan reflects on a career that helped build the field of bioethics from the ground up. From surviving polio as a child to shaping national policies on organ transplantation, informed consent, and end-of-life care, Caplan offers a deeply personal and historically grounded perspective on how ethical thinking became essential to modern healthcare.The conversation explores the lingering distrust born from COVID-19, the ethical blind spots of artificial intelligence, the environmental cost of data infrastructure, and why communication between science and the public may be the most urgent challenge ahead.This episode is both a history lesson and a call to action. Ethics is not abstract philosophy. It is practical problem-solving for real people, real patients, and real consequences.Key TakeawaysBioethics emerged to solve real clinical dilemmas, not theoretical debates.Policies such as informed consent, brain-death standards, and organ allocation were shaped by early bioethics work.Public trust in medicine declined significantly after COVID-19 due to shifting scientific guidance and poor communication.AI introduces ethical risks beyond autonomy and bias, including environmental strain, privacy vulnerability, and unclear liability.The U.S. healthcare system's structure, not just its technology, drives many ethical failures.Ethics must move from academic journals into communities through direct engagement and public dialogue.  Guest SpotlightArt Caplan, PhDOne of the founders of modern bioethics, Dr. Caplan has advised governments, medical institutions, and research bodies on issues ranging from organ transplantation policy to emerging AI ethics. His work bridges philosophy, clinical medicine, and public engagement.Topics DiscussedOrigins of bioethics as a disciplineHuman subject protections and informed consentEnd-of-life decision frameworks and hospice careVaccine hesitancy and post-pandemic mistrustEthical governance of artificial intelligence in healthcareEnvironmental implications of digital infrastructureStructural inequities in U.S. healthcare deliveryThe role of communication in rebuilding scientific trustIf you found this conversation valuable:Follow Research Renaissance for more conversations at the intersection of science, policy, and human health.Share this episode with colleagues working in healthcare, research, or ethics.Leave a review to help more listeners engage with these critical discussions.To learn more about the breakthroughs discussed in this episode and to support ongoing research, visit our website at tofflertrust.org. Technical Podcast Support by Jon Keur at Wayfare Recording Co.

Hans Svennevig joins Dr Hakan Ergül to explore the ethical challenges that emerge as researchers use AI tools and wearable technologies.Hakan and Hans discuss how these systems complicate consent, privacy, autonomy, and the researcher–participant relationship. They ask whether existing ethical principles are robust enough for technologies that collect and interpret data continuously, often without active awareness.Their conversation draws on the AI and Technology Wearables Task and Finish Group Report and Recommendations (2025), commissioned by the UCL Institute of Education Research Ethics Committee and chaired by Hans.Full show notes and links: https://www.ucl.ac.uk/ioe/news/2026/apr/ai-tech-wearables-and-ethics-research-ethicsMore IOE Insights podcasts: https://uclioe.info/podcastUCL Institute of Education: https://ucl.ac.uk/ioe

On this episode of Sustainability Matters, we examine how indigeneity is defined and contested in conversations around identity, science, and sovereignty. Is it something we inherit, or a political construct? How can scientific and Indigenous knowledge systems collaborate without losing their distinct integrity? And what happens when genetic research defines belonging in ways that conflict with cultural and political self-understandings? All this and more with Dr. Benjamin Gregg, author of “Scientific Integrity and Indigenous Justice in Genetic Research,” which is Chapter 5 in the book Indigeneity as Social Construct and Political Tool: Critique and Reconstruction of a Contested Identity, published by De Gruyter Brill. Host: Ramzi NasirGuest: Dr. Benjamin Gregg 

Antonio Zamudio, investigador paranormal con más de tres décadas de trayectoria, analiza cómo distinguir entre charlatanería, desinformación y casos auténticamente inexplicables. La conversación profundiza en la ética del investigador paranormal, la importancia de la metodología científica, la revisión de fuentes, la comprobación de testimonios y los límites entre psicología, parapsicología, posesión, trauma y sugestión. También se revisa un presunto fraude en Puebla vinculado con supuestas momias y vestigios prehispánicos, el contexto histórico de la pirámide de Cholula, la manipulación mediática de hallazgos paranormales y la forma en que gobiernos, creadores de contenido y públicos pueden convertir un caso en espectáculo. Hacia el final, Zamudio comparte qué casos sí considera sólidos, como la Casa Maligna en Apodaca, investigaciones sobre posesión y manifestaciones registradas en tiempo real, dejando una pregunta de fondo: cómo investigar lo paranormal sin sacrificar rigor, ética ni pensamiento crítico. Antonio Zamudio, a Mexican paranormal investigator with more than thirty years of field experience, explains how to separate sensationalism from credible investigation. The conversation covers research ethics, scientific methodology, witness interviews, source verification, psychological analysis, parapsychology, possession cases, and the danger of turning unresolved experiences into viral entertainment. A major section focuses on an alleged fraud in Puebla involving supposed mummies and pre-Hispanic remains, along with the wider historical significance of the Great Pyramid of Cholula and how official narratives, media pressure, and public fascination can distort a case. The episode also explores cases Zamudio considers genuinely compelling, including La Casa Maligna in Apodaca, possession investigations later validated through medical and ecclesiastical review, and a possible real-time manifestation recorded inside a hospital. For listeners searching for serious paranormal research, this is a grounded discussion about evidence, skepticism, trauma, ritual, and unexplained phenomena in Mexico and Latin America. Antonio Zamudio, investigador paranormal mexicano com mais de trinta anos de experiência de campo, explica como separar sensacionalismo de investigação confiável. A conversa aborda ética profissional, metodologia científica, análise de testemunhos, verificação de fontes, psicologia, parapsicologia, casos de possessão e o risco de transformar experiências não explicadas em entretenimento viral. Uma parte central do episódio trata de um suposto caso fraudulento em Puebla envolvendo alegadas múmias e vestígios pré-hispânicos, além da relevância histórica da Grande Pirâmide de Cholula e da forma como narrativas oficiais, pressão midiática e fascínio público podem distorcer um caso. O episódio também destaca investigações que Zamudio considera consistentes, como La Casa Maligna em Apodaca, casos de possessão posteriormente validados em contextos médicos e eclesiásticos, e uma possível manifestação registrada em tempo real dentro de um hospital. Para quem busca conteúdo sobre fenômenos inexplicáveis, assombração, possessão e pesquisa paranormal no México e na América Latina, este episódio oferece contexto, rigor e pensamento crítico.  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the philosophical foundations of research ethics and the challenges of deploying artificial intelligence in medicine with Alex John London, K&L Gates Professor of Ethics and Computational Technologies at Carnegie Mellon University, where he directs the Center for Ethics and Policy. Professor London discusses his book “For the Common Good,” which argues that justice should be the foundational principle of research ethics. Professor London also offers his assessment of AI's promise and limitations in healthcare.  

EspañolEn este último episodio de la cuarta temporada de Living Decoloniality, Carla Vitantonio conversa con Matilde Dani y Asier Hernando Malax-Echevarria para recoger algunos de los hilos que han atravesado esta temporada, la primera realizada en español.A partir de las voces que han participado en los distintos episodios, reflexionamos sobre la ética del cuidado, el lugar de los cuerpos y los saberes situados, y sobre cómo la colonialidad se reproduce en lo cotidiano dentro del trabajo cultural, social y de cooperación.La conversación retoma también una pregunta clave que atraviesa toda la temporada: cómo pasar del discurso a la práctica, entendiendo la decolonialidad no como una identidad, sino como una práctica cotidiana hecha de decisiones, tensiones y responsabilidades.En la parte final, Carla abre además una reflexión sobre la colonialidad del género, un tema todavía poco abordado en el sector de la cooperación internacional y la acción humanitaria.°°°°°°°°°°°°°°°°°°°°°°°°°°°EnglishIn this final episode of the fourth season of Living Decoloniality, Carla Vitantonio is joined by Matilde Dani and Asier Hernando Malax-Echevarria to reflect on some of the key threads that have shaped this season, the first one produced in Spanish.Drawing on the voices featured throughout the series, the conversation explores the ethics of care, the role of bodies and situated knowledge, and the ways coloniality continues to operate in everyday practices within cultural work, social action, and international cooperation.The discussion also returns to a central question running through the season: how to move from discourse to practice, understanding decoloniality not as an identity, but as a daily practice shaped by choices, tensions, and responsibilities.In the final part of the episode, Carla opens a reflection on the coloniality of gender, a topic that remains largely unaddressed within international cooperation and humanitarian sectors.Source List// Recursos:Kamlongera, M. I., & Katenga-Kaunda, M. W. (2023). Researchers' reflections on ethics of care as decolonial research practice: understanding Indigenous knowledge communication systems to navigate moments of ethical tension in rural Malawi. Research Ethics, 19(3), 312-324.Mathebula, Kgatitswe (2026). More than paperwork: Towards a relational, reflexive, and decolonial ethics in research with black women in South Africa.  Methods in PsychologyConstantinou, C.M., McConnell, F., Dilar Dirik, Asebe Regassa, Loong, S. and Rauna Kuokkanen (2024). Reimagining self-determination: Relational, decolonial, and intersectional perspectives. Political geography, pp.103112–103112.Lugones, Maria. 2007. “Heterosexualism and the Colonial / Modern Gender System.” Hypatia 22, no. 1: 186-209.Jhagroe, S., & Salazar-Morales, D. (2025). A theory of policy coloniality: the role of race and colonial knowledge in policy formulation. Critical Policy Studies, 1–21. Trisos, C.H., Auerbach, J. & Katti, M. Decoloniality and anti-oppressive practices for a more ethical ecology. Nat Ecol Evol 5, 1205–1212 (2021).Transcript// transcripciòn 

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore FDA's plausible mechanism pathway for ultra-rare genetic disorders with Holly Fernandez Lynch, Associate Professor of Medical Ethics at the University of Pennsylvania's Perelman School of Medicine. She discusses how this pathway enables personalized gene therapies for N-of-one or N-of-few diseases while raising important questions about regulatory process, evidence standards, and equitable access. Professor Fernandez Lynch also examines the remarkable case of baby KJ, who received a gene editor to treat his urea cycle disorder, and considers both the transformative potential and the procedural concerns surrounding FDA's approach. 

Only two years after the release of the herbicide 'Roundup', the FDA accused it's manufacturer, Monsanto, of falsifying data about the chemical's safety. In December of 2025, a review of the scientific literature on the safety of 'Roundup' was retracted by the journal that published it, over the issue of 'ghostwriting'. This week we present the first part of a comprehensive history of this effective, put potentially carcinogenic herbicide. At the end of the show, we review the cosmic sights that are visible in the night sky in February. ‘Bench Talk: The Week in Science' is a weekly program that airs on WFMP Louisville FORward Radio 106.5 FM (forwardradio.org) every Monday at 7:30 pm, Tuesday at 11:30 am, and Wednesday at 7:30 am. Visit our Facebook page for links to the articles discussed in this episode: https://www.facebook.com/BenchTalkRadio . Public-domain music heard on this show is by Mad Gravity Studio ('Into the Umbra Loop') courtesy of freesound.org.

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the ethical and methodological complexities of suicide and self-harm research with Matthew Nock, PhD, the Edgar Pierce Professor of Psychology at Harvard University and former chair of the Harvard IRB. Dr. Nock discusses how research demonstrates that asking about suicide does not increase risk, the importance of IRB-researcher collaboration, and the challenges of real-time monitoring and intervention with high-risk participants. He shares insights from developing consensus guidelines on ethical conduct of suicide research and emphasizes the critical need for advancing this often-stigmatized field of study.

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the unprecedented wave of federally funded research terminations affecting tens of thousands of study participants. Brandon Brown, MPH, PhD, is a Professor of Medicine at UC Riverside School of Medicine's Department of Social Medicine, Population and Public Health and a Hastings Center Fellow. Dr. Brown discusses the ethical and practical challenges researchers and IRBs face when studies end suddenly due to funding cuts. He examines how IRBs and researchers can collaborate to develop guidance to ensure communication and transparency for impacted researchers and participants.

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we celebrate PRIMR25 Award recipients Lisa Chuba and Alison Pohl from UConn Health, along with the first-ever Outstanding Student Poster Award recipient, Leah Huff, from the University of Virginia. Chuba and Pohl discuss transforming their IACUC's relationship with researchers from adversarial to collaborative through creative outreach programs. Huff shares her research on reimagining consent as an ongoing educational process that adapts to different learning styles, drawing connections between effective teaching and participant understanding.

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we speak with Dr. Josh Fessel about trust in science, translational medicine, and the challenges facing federal research. Dr. Fessel is a physician scientist who most recently served as chief medical officer and director of the Office of Translational Medicine in the National Center for Advancing Translational Sciences at NIH. He discusses lessons from the COVID-19 pandemic, ethical considerations in AI implementation, and his decision to leave federal service when directives conflicted with his values as a physician and researcher.

Send us a textDisclaimer: Entertainment only. Eeks is not a public health historian; just a gremlin who reads too much and asks weird questions What's insideThe myth of “truth serum” and why scopolamine never earned the badgeFrom twilight sleep in childbirth to spy stories and interrogation loreWhat scopolamine actually does: amnesia, confusion, suggestibilityModern misuse and crime angles, plus real risksEthics, consent, and why the legend still sellsEeks' thoughts on an "actual" truth serum, but she really wants to know yoursWhy listen A sharp, strange, funny tour of medicine, memory, and power—where a drug's reputation outruns its evidence.References cited in the podcast: Embryo Project EncyclopediaPhysician's flowersMKUltraJeremy Grey, AL.COM, Alabama Axe MurdersAlabama Axe Murder ConfessionsTinder Death News StoryState Dept WarningYou can contact Dr. Eeks at bloomingwellness.com.Follow Eeks on Instagram here.Or Facebook here.Or X.On Youtube.Or TikTok.SUBSCRIBE to her WEEKLY newsletter here! (Now featuring interviews with top experts on health you care about!)Share the weird: If you liked this, send it to a friend who loves public health history with teeth.Support the show

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the intersection of artificial intelligence, trust, and bioethics with Dr. Vardit Ravitsky, President and CEO of the Hastings Center for Bioethics. Dr. Ravitsky discusses the rapid implementation of AI in healthcare and biomedical research, strategies for combating misinformation, and maintaining organizational values during challenging political times. She also shares practical advice for emerging professionals in bioethics and biomedical research.

In this episode of "Research Ethics Reimagined," we explore human challenge studies for shigellosis, examining their role in vaccine development and the ethical considerations surrounding intentional infection of healthy volunteers. Our guests are Dr. Wilbur H. Chen, the Frank M. Calia, MD Endowed Professor and Chief of the Division of Geographic Medicine at the University of Maryland School of Medicine, and Jake Eberts of 1Day Sooner, who is a former participant in a Shigella challenge trial.

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore groundbreaking cancer vaccine research for dogs with potential implications for human cancer treatment. Our guest is Dr. Mark Mamula, Professor at the Yale School of Medicine and leading researcher in immunology and innovative vaccine development. 

What does it look like to take a neuroscience degree far beyond the lab? In this episode, we explore a career path that crosses scientific research, government regulation, and biotech entrepreneurship with Dr. Amanda Wiggins, CEO of The cGP Lab. Amanda began her career investigating neurodegeneration and cortical spreading depression. Over time, her passion for real-world impact led her into public policy—where she helped shape New Zealand's Human Tissue Act and advised on regulations for stem cell research and genetic technologies. Today, she leads a company advancing neuroprotective health supplements based on cyclic Glycine-Proline (cGP), a molecule with growing potential in aging and cognitive health. We talk about: How to navigate transitions between academia, government, and business The challenges of working across disciplines—and how to build confidence in new spaces Lessons learned from leading regulatory change and scaling innovation Amanda's work at The cGP Lab and the science behind cGP's potential in brain health Advice for scientists who want to move into leadership, entrepreneurship, or public engagement This conversation is for anyone considering a non-linear career in neuroscience or wondering how to apply scientific training in new and meaningful ways. Chapters: 00:00:02 - Bridging Neuroscience and Biotech Innovation 00:04:06 - FDA Approval of Trofinetide for Rett Syndrome 00:07:27 - My Journey in Science and Identity 00:09:22 - Pursuing a PhD in Melbourne 00:11:55 - Choosing a PhD Topic 00:17:26 - Challenges and Motivation in PhD Journey 00:20:54 - Transition from Academia to Regulatory Work 00:22:52 - Transitioning from Academia to Policy 00:25:51 - Advising on the Human Tissue Act 00:29:18 - Advocating Biotechnology in New Zealand 00:33:51 - Regulations and Challenges in Biotechnology 00:37:49 - Newborn Blood Screening and Research Ethics 00:41:22 - Transitioning from Science to Biotech 00:46:04 - Challenges of Startup Success 00:48:34 - Journey to Neuroactive Innovation 00:55:23 - Mentorship and Startup Advice 00:58:49 - Dementia Prevention and Early Detection 01:02:03 - Exploring Alzheimer's Research Frontiers 01:06:45 - Advancing Your Neurocareer About the Podcast Guest:

Professor Eileen Kennedy shares her experiences regarding the ethical dilemmas encountered in the co-design context, where research participants are actively involved.What unforeseen ethical challenges might surface as the research progresses?Could there be situations where obtaining participant consent is not enough? How should one proceed in such cases?In this podcast episode, Eileen and Hakan aim to explore these questions together.Full show notes: https://www.ucl.ac.uk/ioe/news/2025/jun/beyond-consent-ethical-dilemmas-co-design-research-research-ethics-s01e04

Dr Michelle Cannon joins Dr Hakan Ergül to explore the ethical dilemmas that arise when using digital technologies for creative work in the classroom.How do we strike a balance between guiding students in their storytelling while preserving their agency? What strategies can researchers employ to navigate the complexities of confidentiality, privacy, and consent in digital production?In this episode, they discuss how digital tools can empower students, fostering creativity and amplifying their voices without compromising their autonomy.Full show notes and transcript: https://www.ucl.ac.uk/ioe/news/2025/jun/embracing-chaos-creativity-agency-and-ethics-digital-storytelling-research-ethics-s01e03

In this episode of "Research Ethics Reimagined," Mark Barnes, JD, LLM, a partner in the healthcare and life sciences practice at Ropes and Gray LLP in Boston shares his thoughts on the first 100 days of the new administration and identifies the ongoing legal challenges that affect the research oversight community. 

Dr Sara Young reflects on her experiences collaborating with children in the context of migration.How feasible is it to uphold ethical principles amid the uncertainties of the field?Taking the participants' vulnerability into account, what ethical considerations should be made both before and during fieldwork to ensure that children are actively included as co-researchers?Sara shares her valuable suggestions and insights on ethics, in conversation with Dr Hakan Ergül.Full show notes: https://www.ucl.ac.uk/ioe/news/2025/may/empowering-agency-collaborating-children-context-migration-research-ethics-s01e02

When it comes to studying how bots affect human behaviour, there are other ways to do it than pretending to be one of those bots…Go to this episode on rnz.co.nz for more details

What ethical questions does working with young children raise? A conversation with Dr Karen Wilkes.How should researchers approach collaborating with children in creative ways to ensure the research is beneficial for all involved?In this conversation, Karen discusses her thoughts and experiences on research ethics, offering advice to researchers working with children on ethics preparation prior to fieldwork.Karen shares insights from her recent research on the societal repercussions of rapid gentrification in London, aiming to document the transformations through the eyes of primary school students.Full show notes: https://www.ucl.ac.uk/ioe/news/2025/may/working-withfor-children-documenting-social-change-research-ethics-s01e01

In this episode of "Research Ethics Reimagined," we explore community-engaged research and its role in advancing health equity, particularly in cancer care. Our guest is Monica L. Albertie, Director of Research Operations for Community Outreach and Engagement at the Mayo Clinic Comprehensive Cancer Center. She provides operational leadership for cancer-focused community outreach and community-engaged research aimed at reducing the cancer burden. In addition to her leadership role, Monica also serves as an Assistant Professor of Health Care Administration at the Mayo Clinic College of Medicine and Science. 

Send us a textDr. Michael Koren Join Kevin Geddings to reflect on the evolution of medical research ethics from the troubling practices at Willowbrook Hospital in the 1970s to today's patient-centered approach. He connects this progression to John Lennon and Yoko Ono's final major concert, which raised awareness about conditions at the hospital while highlighting how far ethics in clinical trials have advanced.Be a part of advancing science by participating in clinical research.Have a question for Dr. Koren? Email him at askDrKoren@MedEvidence.comListen on SpotifyListen on Apple PodcastsWatch on YouTubeShare with a friend. Rate, Review, and Subscribe to the MedEvidence! podcast to be notified when new episodes are released.Follow us on Social Media:FacebookInstagramX (Formerly Twitter)LinkedInWant to learn more? Checkout our entire library of podcasts, videos, articles and presentations at www.MedEvidence.comMusic: Storyblocks - Corporate InspiredThank you for listening!

In this episode, Doretha Walker, MPA, PhD, and Brenda Jamerson, PharmD, join us to explore the evolution of women's health research since the NIH Revitalization Act of 1993. They'll discuss how women's health understanding has evolved, key advancements, and the impact of the lack of diversity in clinical trials. Our guests will also highlight critical gaps in women's health research and how we can address them.  

During our first episode of Season 2 of Research Ethics Reimagined, Guest Host Robert Nobles, DrPH, MPH, CIP takes us beyond our usual conversations into the cosmos—literally. Our guest is Rachael Dempsey, the Chief Operations and Communications Officer at the Translational Research Institute for Space Health, also known as TRISH. TRISH is at the forefront of safeguarding human health in space, working alongside NASA and leading institutions like Baylor College of Medicine, MIT, and Caltech to tackle the challenges of long-duration space travel.  

Hey friends! In this short bonus episode of the Finding Strength Podcast, I explore the critical topic of trauma-informed research, how we can ethically study trauma without causing harm. As a 4th-year PhD student at National University, I'm currently taking a course titled Research Ethics in Trauma and Disaster Response, and this episode is part of an academic assignment. In the episode we discuss the prevalence of trauma, the six principles of trauma-informed care, and best practices for conducting research that prioritizes participant safety, trust, and empowerment. Whether you're a researcher, clinician, or someone passionate about ethical trauma work, this episode is packed with insights to help you navigate the complexities of studying trauma responsibly.

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we discuss the research of the U.S. Department of Veterans Affairs' Office of Research and Development, in particular the Million Veteran Program (MVP). The MVP is a national research program looking at how genes, lifestyle, military experiences, and exposures affect health and wellness in veterans. Since launching in 2011, 1 million veterans have joined MVP, making the MVP the largest research effort at VA to improve health care for veterans and one of the largest research programs in the world studying genes and health, according to the VA. We'll speak with Drs. Muralidhar and Vassy to learn more. 

AGU Ethical Framework Principles for SRM research Tyler Felgenhauer, Duke University https://news.agu.org/press-release/ethical-framework-climate-intervention-research/

As AI rapidly integrates into our lives, it presents both immense opportunities and significant risks. This podcast explores the urgent need for robust governance frameworks to ensure AI is used responsibly. We will delve into ethical guardrails, risk mitigation strategies, and best practices inspired by academic AI principles. Join us to discover how to harness AI's power while upholding your organization's values. Speakers: Brian Warshawsky, Director, Research Ethics and Compliance, University of California, Berkeley Tatyana Sanchez, Content & Program Coordinator, RSAC Kacy Zurkus, Senior Content Manager, RSAC

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the Promise Zone Research Connection (PZRC) and its Community Research Review Board (CRRB) in West Philadelphia. Our guests are Caleila Burrell, Project Coordinator for the PZRC and West Philadelphia resident; Allison Rusgo, Associate Clinical Professor at Drexel University and doctoral candidate at the School of Public Health; and Dr. Amy Carroll-Scott, Associate Professor and Chair of the Department of Community Health and Prevention at Drexel Dornsife School of Public Health. 

In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the intersection of research ethics, online communities, and emerging technologies, with a focus on Reddit. Our guests are Nicholas Proferes, PhD, who is an associate professor at Arizona State University; Sarah Gilbert, PhD, who is a research associate at Cornell University; and Kyle Pittman, MPA, who is moderator of the subreddit "Indian Country" and faculty member at Evergreen State College.

Join us as we explore ethical community engagement, health justice, and health equity with Dr. Ebony Johnson. In this episode of The Healthy Project Podcast, we dive into data diversity, community trust, public health, research ethics, policy impact, and the social determinants of health. This conversation, hosted by Corey Lewis, uncovers the challenges and opportunities in community-based research, partnerships in research, health communication, health policy, health outcomes, and the critical need for diversity in research.Don't miss this thought-provoking episode and subscribe to The Healthy Project for more health disparities and equity insights.Key Topics Covered:Introduction to Ethical Community Engagement: What it is and why it's crucial for health justice.Shared Power in Research: Moving from a researcher-subject dichotomy to a partnership model.Building Community Trust: Strategies for researchers to earn and maintain trust within communities.Data Diversity & Representation: The impact of diverse data on research outcomes and health policy.Challenges in Public Health Research: Addressing the difficulties of connecting with underrepresented groups.Health Equity vs. Health Justice: Understanding the difference and why both are essential.Policy Impact on Health Outcomes: How data can be used to influence health policy and create equitable health systems.The Intersection of Physical Activity & Health Justice: Dr. Johnson's personal story of how powerlifting ties into her work in health equity.Final Thoughts & Call to Action: Encouraging listeners to engage with The Healthy Project and stay connected with Dr. Ebony Johnson.Connect with Dr. Ebony Johnson:LinkedIn: Ebony DJWebsiteStay Connected with The Healthy Project:Subscribe to our newsletter for updates: The Healthy Project NewsletterFollow us on social media for the latest episodes and health tips.Chapter Markers:0:00 - Introduction1:00 - What is Ethical Community Engagement?3:45 - The Importance of Shared Power in Research7:15 - Building Trust Between Communities and Researchers10:40 - Challenges in Data Diversity and Representation15:00 - Partnering with Organizations for Better Health Outcomes20:15 - Health Equity vs. Health Justice24:30 - The Role of Policy in Health Equity29:00 - Intersection of Powerlifting and Health Justice33:00 - How to Connect with Dr. Ebony Johnson34:00 - Subscribe to The Healthy ProjectEpisode Resources:Social Determinants of HealthCommunity-Based Participatory Research (CBPR)Health Equity ToolsSupport: If you enjoyed this episode, please leave a review on your favorite podcast platform and share it with your network. Don't forget to subscribe to The Healthy Project for more discussions on health equity, public health, and community engagement.Contact Us:Website: The Healthy ProjectEmail: podcast@healthyprojectmedia.com ★ Support this podcast ★

We speak with Jim Greiner, PhD about his work in researching the outcomes of the justice system, focusing on implementing evidence-based decision making rather than applying precedent. We also explore his ideas on how to make IRB rulings more transparent to help build trust in science. 

In this episode, we explore how scientific research with humans and other animals is intertwined, yet plays fundamentally different roles in producing new knowledge with broad-ranging benefits. 

In this month's episode of the Scope of Things, host Deborah Borfitz gives you the latest news on the fallacy of a survival benefit for cancer patients participating in clinical trials, how and why federally qualified health centers are getting involved in studies, efforts to disrupt the current practice of excluding pregnant and lactating women from participation, great news about the impact of precision medicine on the outcomes of kids suffering from aggressive cancers, and more. Jonathan Kimmelman, PhD, Professor of Biomedical Ethics at McGill University, also joins Deborah to discuss current dilemmas in clinical development and how research standards are trending. Kimmelman talks about the ethical implications when trial sponsors don't fully disclose how patient input is utilized in drug development, key policies that are necessary and would have a big impact on regulators, and what would-be participants can do to be more informed about trials. 

In this episode of PRIM&R's podcast, “Research Ethics Reimagined,” we explore the intersection of artificial intelligence, ethics, and studying human behavior in the digital age. Our guest is Mary L. Gray, Senior Principal Researcher at Microsoft Research and Faculty Associate at Harvard University's Berkman Klein Center for Internet and Society.

In this podcast episode, Diana and Nicole discuss the evolving role of AI chatbots in various writing contexts, particularly in academia and genealogy. They highlight the changing policies around the use of large language models (LLMs) in academic writing, noting how organizations like the International Conference on Machine Learning have shifted from prohibiting to allowing LLMs, provided that authors are responsible for the content and its integrity. They delve into the ethical considerations of using AI in genealogy writing, especially for projects that are meant for accreditation or professional certification. They stress the importance of originality and caution against claiming AI-generated work as one's own, citing ethical guidelines that discourage taking credit for others' contributions, including those made by AI. Nicole created this summary with ChatGPT 4. Links Disclosing Use of AI for Writing Assistance in Genealogy - https://familylocket.com/disclosing-use-of-ai-for-writing-assistance-in-genealogy/ Program Chairs for the International Conference on Machine Learning, “ICML 2024,” icml.cc, 2024, https://icml.cc/Conferences/2024/CallForPapers. See also Program Chairs for the International Conference on Machine Learning, “International Conference on Machine Learning (ICML) 2023,” icml.cc, 2023, https://icml.cc/Conferences/2023/llm-policy. Mohammad Hosseini, David B Resnik, and Kristi Holmes, “The Ethics of Disclosing the Use of Artificial Intelligence Tools in Writing Scholarly Manuscripts,” Research Ethics 19, no. 4 (June 15, 2023): 449–65, https://doi.org/10.1177/17470161231180449. Gregory E Kaebnick et al., “Editors' Statement on the Responsible Use of Generative AI Technologies in Scholarly Journal Publishing,” Hastings Center Report 53, no. 5 (September 1, 2023): 3–6, https://doi.org/10.1002/hast.1507. Lindsey Passenger Wieck, “Revising Historical Writing Using Generative AI: An Editorial Experiment,” www.historians.org, August 15, 2023, https://www.historians.org/research-and-publications/perspectives-on-history/summer-2023/revising-historical-writing-using-generative-ai-an-editorial-experiment. Sponsor – Newspapers.com For listeners of this podcast, Newspapers.com is offering new subscribers 20% off a Publisher Extra subscription so you can start exploring today. Just use the code “FamilyLocket” at checkout.  Research Like a Pro Resources Airtable Universe - Nicole's Airtable Templates - https://www.airtable.com/universe/creator/usrsBSDhwHyLNnP4O/nicole-dyer Airtable Research Logs Quick Reference - by Nicole Dyer - https://familylocket.com/product/airtable-research-logs-for-genealogy-quick-reference/ Research Like a Pro: A Genealogist's Guide book by Diana Elder with Nicole Dyer on Amazon.com - https://amzn.to/2x0ku3d 14-Day Research Like a Pro Challenge Workbook - digital - https://familylocket.com/product/14-day-research-like-a-pro-challenge-workbook-digital-only/ and spiral bound - https://familylocket.com/product/14-day-research-like-a-pro-challenge-workbook-spiral-bound/ Research Like a Pro Webinar Series 2024 - monthly case study webinars including documentary evidence and many with DNA evidence - https://familylocket.com/product/research-like-a-pro-webinar-series-2024/ Research Like a Pro eCourse - independent study course -  https://familylocket.com/product/research-like-a-pro-e-course/ RLP Study Group - upcoming group and email notification list - https://familylocket.com/services/research-like-a-pro-study-group/ Research Like a Pro with DNA Resources Research Like a Pro with DNA: A Genealogist's Guide to Finding and Confirming Ancestors with DNA Evidence book by Diana Elder, Nicole Dyer, and Robin Wirthlin - https://amzn.to/3gn0hKx Research Like a Pro with DNA eCourse - independent study course -  https://familylocket.com/product/research-like-a-pro-with-dna-ecourse/ RLP with DNA Study Group - upcoming group and email notification list - https://familylocket.com/services/research-like-a-pro-with-dna-study-group/ Thank you

In this episode of Research Ethics Reimagined, we explore building and maintaining trust in research and science in the 21st century by creating a connection with the public and simplifying the language scientists use. Our guests are Robert Nobles, DrPH, MPH, CIP, Vice President for Research Administration at Emory University and Amanda M. Dettmer, PhD a research scientist at the Yale Child Study Center. 

Guest Sergiu Pasca is a physician-scientist who turns skin cells into stem cells and then into brain tissues he calls “organoids” and “assembloids” in order to study psychiatric and neurological illness in a dish instead of in living human beings. With this knowledge, Pasca hopes to develop new treatments for conditions ranging from schizophrenia and autism spectrum disorders to chronic pain, he tells host Russ Altman in this episode of Stanford Engineering's The Future of Everything podcast.Episode Reference Links:Sergiu's Lab: Pasca LabSergiu's Stanford Profile: WebsiteCenter at Stanford Sergiu Leads: Stanford Brain OrganogenesisSergiu's recently published paper: Antisense Oligonucleotide Therapeutic Approach for Timothy SyndromePaper by Shinya Yamanaka Sergiu discusses: Induction of Pluripotent Stem Cells from Mouse Embryonic and Adult Fibroblast CulturesConnect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads or Twitter/XConnect with School of Engineering >>> Twitter/XChapters:(00:00:00) IntroductionRuss introduces guest, Sergiu Pasca, professor of Psychiatry and Behavioral Sciences at Stanford University.(00:02:43) The Science of Growing Brain Tissue from Skin CellsThe process of developing brain organoids from skin cells and the potential medical applications of these models.(00:03:59) Enhancing Neurological Research ToolsAdvancing the complexity of brain models to include various brain structures and their applications in modeling diseases.(00:07:20) Introduction of AssembloidsIntroduction to assembloids, detailing how combining different organoids can mimic complex brain structures(0015:58) Testing Therapeutics Using Humanized ModelsThe innovative approach of using humanized rat models to test neurological therapies and drugs.(00:21:03) Complex Circuit Modelling for Disease UnderstandingThe current capabilities of modeling complex brain circuits and their relevance in  understanding the neural pathways involved in diseases.(00:23:36) The Future of Pain Modelling and Drug TestingHow assembled brain cells can model pain perception and response, leading to potential new treatments for chronic pain and psychiatric disorders(00:27:46) Ethical Considerations and Public EngagementEthical concerns related to creating brain-like tissues and the importance of public engagement in scientific research.(00:32:01) Future Directions and Global CollaborationThe future of brain organogenesis research and the potential impacts on treating neurological and psychiatric conditions.(00:34:05) Conclusion Connect With Us:Episode Transcripts >>> The Future of Everything WebsiteConnect with Russ >>> Threads or Twitter/XConnect with School of Engineering >>> Twitter/X

“Research Ethics Reimagined” is a podcast created by Public Responsibility in Medicine and Research (PRIM&R), hosted by Ivy R. Tillman, PRIM&R's executive director. Here, we talk with scientists, researchers, bioethicists and some of the leading minds exploring new frontiers of science.  This season, we are going examine research ethics in the 21st century -- and learn why it matters to you. Episode 1 launches May 8, 2024.

This episode on MedEvidence Monday Minute navigates the compelling crossroads of ethics, sports, and medical clinical trials, who better to guide us than, Dr. Michael Koren, a seasoned cardiologist and research scientist? Get ready to tackle thought-provoking parallels between the secrecy and competition of signal stealing in college football and that of clinical trials for cutting-edge medicines. Dr. Koren uncovers the ethical dilemmas, emphasizing the patient's best interest and how healthcare providers wield their knowledge to steer them toward the best decisions, all while maintaining the cloak of confidentiality. Ever wondered about the disparities between the COVID and flu vaccines? Shake off your misconceptions as we break down why it's illogical to deem the flu vaccine safe but shun the COVID one.Be a part of advancing science by participating in clinical researchShare with a friend. Rate, Review, and Subscribe to the MedEvidence! podcast to be notified when new episodes are released.Follow us on Social Media:FacebookInstagramTwitterLinkedIn Powered by ENCORE Research GroupMusic: Storyblocks - Corporate InspiredThank you for listening!

Addresses human subjects research in space, including the unique ethical and regulatory considerations.Our guest today is Tom Salazar, the Chief Research Oversight and Compliance Officer at Travis Air Force Base in Northern California. Tom's areas of expertise include bioethics and research compliance in topics such as psychedelic drugs, neuroscience, artificial intelligence, and space research.Additional resources:Tom Salazar's email: trssalazar@ucdavis.eduThe Outer Space Treaty of 1966: https://www.unoosa.org/oosa/en/ourwork/spacelaw/treaties/introouterspacetreaty.htmlCode of Conduct for the International Space Station Crew (14 CFR 1214.403): https://www.ecfr.gov/current/title-14/chapter-V/part-1214/subpart-1214.4/section-1214.403

Matthew Normand & Hailey Donohue join us to talk about their paper, Research Ethics for Behavior Analysts in Practice Show Notes Remember to join us on Facebook to suggest articles to review and questions for authors. https://www.facebook.com/BApractice Acknowledgments Host and Executive Producer: Cody Morris, Ph.D., BCBA-D, LBA https://salve.edu/users/dr-cody-morris Assistant Producers Jesse Perrin Jacob Oliveira Megan Ellsworth Organizational Support ABAI https://www.abainternational.org/welcome.aspx Behavior Analysis in Practice Editor, Stephanie Peterson, Ph.D., BCBA-D, LBA https://www.abainternational.org/journals/bap.aspx Music Cruising Altitude by Jim Carr and his band New Latitude http://www.newlatitudemusic.com Link to Article Research Ethics for Behavior Analysts in Practice | SpringerLink References Fisher, W., Fuhrman, A., Greer, B., Ibañez, V., Peterson, K. & Piazza, C. (2023). Ethical considerations with balancing clinical effectiveness with research design. https://10.1016/B978-0-323-90969-3.00007-4   LeBlanc, L. A., Nosik, M. R., & Petursdottir, A. (2018). Establishing consumer protections for research in human service agencies. Behavior Analysis in Practice, 11(4), 445–455. https://doi.org/10.1007/s40617-018-0206-3   Normand, M.P., & Donohue, H.E. (2023). Research ethics for behavior analysts in practice. Behavior Analysis in Practice 16, 13–22. https://doi.org/10.1007/s40617-022-00698-5

Explore the fascinating world of Military Medicine research and ethics with our special guest, retired Army Nurse Corps Colonel Dr. Laura Brosch. As the Assistant Vice President of Research Initiatives and Compliance at the Uniformed Services University of the Health Sciences, Dr. Brosch shares her journey into Military Medicine and experiences developing ethical protocols for conducting research in combat theaters. From the development of Theater Clinical Practice Guidelines to the introduction of novel treatment modalities for combat casualty care, you'll gain incredible insight into the challenges and advancements in Military Medicine. Discover how the Special Medical Augmentation Response Team (SMART) and the military's use of Investigational New Drugs (INDs) are crucial in modern Military Medicine. Dr. Brosch discusses the importance of regulatory compliance when administering these drugs and highlights the advancements in surgical products like combat gauze, Chitosan powder, and much more. Learn how these products were safely fielded in high OP TEMPO environments and understand the unique challenges faced when setting up a research capability in theater. Join us as we delve into the Joint Trauma System and the Theater Clinical Practice Guidelines developed under Colonel Paul Cordts' guidance. Dr. Brosch shares the ethical considerations taken into account when deciding which protocols to implement, such as DVT prophylaxis, tourniquet use, hypothermia prevention, and concussion awareness. Hear about the challenges of collecting data in the chaos of combat and the processes used to obtain DOD-required waivers and approvals for hospital trauma research. This conversation offers a unique perspective on the complex ethical considerations of conducting medical research in the military. Don't miss this enlightening discussion! Chapters: (0:00:00) - Military Medicine Research and Ethics (0:10:11) - Medical Research in Theater (0:26:40) - Trauma Research Guidelines and Waivers (0:41:14) - Military Medical Research and Ethics   Chapter Summaries: (0:00:00) - Military Medicine Research and Ethics (10 Minutes) We speak with Dr. Laura Brosch, a retired Army Nurse Corps Colonel and Assistant Vice President of Research Initiatives and Compliance at the Uniformed Services University of the Health Sciences. We discuss her pathway into Military Medicine and how she became the nursing research consultant to the Surgeon General. She shares how the Medical Research And Material Command played an early role in OAF and OEF, and how a plan was developed to ethically conduct research in combat theaters. Laura also explains how Theater Clinical Practice Guidelines were developed and how they've evolved over the past 20 years, and how the military brings novel treatment modalities for combat casualty care to the battlefield.   (0:10:11) - Medical Research in Theater (16 Minutes) Dr Laura Brosch and I discussed the Special Medical Augmentation Response Team (SMART) and the military's use of Investigational New Drugs (INDs). We explored the responsibility of SMART and the importance of regulatory compliance when administering these drugs. We also examined the advancements made in surgical products like combat gauze, Chitosan powder, and other products, and how they were safely fielded in a high OP TEMPO environment. Lastly, we talked about the need to set up a research capability in theater and the unique challenges this presented.   (0:26:40) - Trauma Research Guidelines and Waivers (15 Minutes) We discuss the Joint Trauma System and the Theater Clinical Practice Guidelines they developed, Colonel Paul Cordts' involvement in bringing these guidelines to life, and the ethical considerations taken into account when deciding which protocols to implement. Specific protocols such as DVT prophylaxis, tourniquet use, hypothermia prevention, and concussion awareness are discussed. The challenges of collecting data in the chaos of combat and the processes used to obtain DOD-required waivers and approvals for hospital trauma research are also discussed.   (0:41:14) - Military Medical Research and Ethics (7 Minutes) We talk with Dr Laura Brosch about the complex ethical considerations of conducting medical research. We explore the protocol she developed to allow the use of investigational products in the event of combat casualties. We discuss the regulation changes and how our research community has become more sophisticated. We also discuss the special rules for military service regarding research protections, and Laura shares her experiences as Assistant Vice President of Research Initiatives and Compliance at the Uniformed Services University of the Health Sciences. Finally, we reflect on her contributions to Military Medicine and the importance of ethical conduct in research.   Episode Keywords: Military Medicine, Research Ethics, Army Nurse Corps, Uniformed Services University, SMART, Investigational New Drugs, Combat Gauze, Chitosan Powder, Joint Trauma System, Theater Clinical Practice Guidelines, DVT Prophylaxis, Tourniquet Use, Hypothermia Prevention, Concussion Awareness, Regulatory Compliance, Research Capability, DOD Waivers, Research Protections Hashtags: #wardocs #military #medicine #podcast #MilitaryMedicine #CombatCasualtyCare #ResearchEthics #SMARTteam #InvestigationalNewDrugs #SurgicalAdvancements #JointTraumaSystem #CombatMedicine #Research   Honoring the Legacy and Preserving the History of Military Medicine   The WarDocs Mission is to honor the legacy, preserve the oral history, and showcase career opportunities, unique expeditionary experiences, and achievements of Military Medicine. We foster patriotism and pride in Who we are, What we do, and, most importantly, How we serve Our Patients, the DoD, and Our Nation.   Find out more and join Team WarDocs at https://www.wardocspodcast.com/ Check our list of previous guest episodes at https://www.wardocspodcast.com/episodes   Listen to the “What We Are For” Episode 47. https://bit.ly/3r87Afm WarDocs- The Military Medicine Podcast is a Non-Profit, Tax-exempt-501(c)(3) Veteran Run Organization run by volunteers. All donations are tax-deductible and go to honoring and preserving the history, experiences, successes, and lessons learned in Military Medicine. A tax receipt will be sent to you. WARDOCS documents the experiences, contributions, and innovations of all Military Medicine Services, ranks, and Corps who are affectionately called "Docs" as a sign of respect, trust, and confidence on and off the battlefield, demonstrating dedication to the medical care of fellow comrades in arms.     Follow Us on Social Media Twitter: @wardocspodcast Facebook: WarDocs Podcast Instagram: @wardocspodcast LinkedIn: WarDocs-The Military Medicine Podcast