Podcasts about biomedical ethics

https://eggshelltherapy.com/podcast-blog/2025/04/30/brianearp/In this episode, we discuss- Dr. Brian Earp's prolific academic work in philosophy, psychology, and medical ethics.- how his conservative religious upbringing sparked his curiosity about morality and ethics.- his transition from professional theater to academia and his commitment to a PhD at age 30.- his research on love, obsession, and addiction, and his critique of monogamy as a societal default.- his book Love Drugs and the ethics of using medical technologies to enhance relationships.- ethical challenges in AI, his stance on bodily autonomy.- his current projects on AI, personalized digital tools, and more! Some Quotes from Dr. Earp “Whether it's harmful can be kind of contingent on historical and social attitudes.”“If you think love is about fundamentally wanting to contribute to the flourishing of another person… then the question of whether you should possess them… might not be conducive to their flourishing.” “We should advocate for a view of love according to which it's something that is rooted fundamentally in care and respect.”“Addiction can be part of one's identity… if you cure yourself of this addiction, you almost change who you are.”About Dr. Brian Earp Associate Professor Brian D. Earp, PhD, is director of the Oxford-NUS Centre for Neuroethics and Society (OCNS) and the EARP Lab (Experimental Bioethics, Artificial Intelligence, and Relational Moral Psychology Lab) within the Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore (NUS). Brian is also an Associate Professor of Philosophy and of Psychology at NUS by courtesy.See www.brianearp.com for more information.Eggshell Therapy and Coaching: eggshelltherapy.com About Imi Lo: www.imiloimilo.comInstagram:https://www.instagram.com/eggshelltherapy_imilo/ Newsletters: https://eepurl.com/bykHRzDisclaimers: https://www.eggshelltherapy.com/disclaimers Trigger Warning: This episode may cover sensitive topics including but not limited to suicide, abuse, violence, severe mental illnesses, relationship challenges, sex, drugs, alcohol addiction, psychedelics, and the use of plant medicines. You are advised to refrain from watching or listening to the YouTube Channel or Podcast if you are likely to be offended or adversely impacted by any of these topics. Disclaimer: The content provided is for informational purposes only. Please do not consider any of the content clinical or professional advice. None of the content can substitute mental health intervention. Opinions and views expressed by the host and the guests are personal views and they reserve the right to change their opinions. We also cannot guarantee that everything mentioned is factual and completely accurate. Any action you take based on the information in this episode is taken at your own risk.

In this episode of Behind the Genes, we explore how ethical preparedness can offer a more compassionate and collaborative approach to genomic medicine. Drawing on insights from the EPPiGen Project, our guests discuss how creative storytelling methods, like poetry, have helped families and professionals navigate the complex emotional, ethical and practical realities of genomics. Our guests reflect on the power of involving patients and families as equal partners in research, and how this can lead to more inclusive, empathetic, and effective care. The conversation explores how ethics can be a tool for support, not just regulation, and how creating space for people to share their stories can have a lasting impact on healthcare delivery. Our host for this episode, Dr Natalie Banner, Director of Ethics at Genomics England is joined by Professor Bobbie Farsides, Professor of Clinical and Biomedical Ethics and Dr Richard Gorman, Senior Research Fellow, both at Brighton and Sussex Medical School, and Paul Arvidson, member of the Genomics England Participant Panel and the Dad's Representative for SWAN UK. Paul shares his poem 'Tap tap tap' from the Helix of Love poetry book and we also hear from Lisa Beaton and Jo Wright, both members of the Participant Panel. "The project gave us the tools to find a different way to get at all of those things inside of all of us who were going through that experience... It's almost like a different lens or a different filter to give us a way to look at all those things, almost like a magnifying lens; you can either hold it really close to your eye and it gives you like a blurry view of the world that goes on and you can relax behind that and find a way to explore things in a funny way or an interesting way, but you can also go really close into the subject and then you've got to deal with the things that are painful and the things that are difficult and the things that have had an impact." You can download the transcript, or read it below. Natalie: Welcome to Behind the Genes. Bobbie: In an earlier conversation with Paul, he used the word ‘extractive,' and he said that he's been involved in research before, and looking back on it he had felt at times it could be a little bit extractive. You come in, you ask questions, you take the data away and analyse it, and it might only be by chance that the participants ever know what became of things next. One of the real principles of this project was always going to be co-production and true collaboration with our participants. Our participants now have a variety of ways in which they can transport their voices into spaces that they previously found maybe alienating, challenging, and not particularly welcoming. Natalie: My name is Natalie Banner, I'm the Director of Ethics at Genomics England and your host on today's episode of Behind the Genes. Today I'll be joined by Paul Arvidson, a member of the participant panel at Genomics England, Professor Bobbie Farsides, Professor of Clinical and Biomedical Ethics at Brighton and Sussex Medical School, and Dr Rich Gorman, Senior Research Fellow, also at Bright and Sussex Medical School.  Today, we'll be exploring the ethical preparedness in genomic medicine or EPPiGen Project. This project examined how the promise and challenges of genomic medicine are understood and experienced by the people at the heart of it, both the clinicians providing care and the patients and families involved.  A big part of the EPPiGen Project explored using creative methods of storytelling and poetry to explore the experiences of parents of children with rare genetic conditions.  We'll discuss why the idea of ethical preparedness is crucial in genomic medicine to acknowledge the challenges and uncertainties that often accompany the search for knowledge and treatment in genomic healthcare, and to help professionals develop the skills to navigate the complex ethical considerations.    If you enjoy today's episode we'd love your support. Please like, share and rate us wherever you listen to your podcasts. Is there a guest you'd really like to hear on a future episode?  Get in touch at podcast@genomicsengland.co.uk. So, I'm going to ask our fantastic guests to introduce themselves.  Paul, would you like to go first? Paul: Hi, I'm Paul Arvidson. As well as my Genomics England hat, I've got a SWAN hat as well, I'm the dads' rep for SWAN UK, and I'm on the poets from the EPPiGen Project.  Natalie: Brilliant to have you hear today. Thanks, Paul. Rich?  Rich: Hi, I'm Rich Gorman, I'm a Senior Research Fellow at Brighton and Sussex Medical School and I've been working on some of the research on the EPPiGen Project that looks at people's social and ethical experiences of genomic medicine, and particularly families' lived experiences of genomics.  Natalie: Brilliant. Really looking forward to hearing from you. And Bobbie?  Bobbie: Hello, I'm Bobbie Farsides, I'm Professor of Clinical and Biomedical Ethics at Brighton and Sussex Medical School and co-PI with Professor Anneke Lucasson of the Wellcome Trust funded EPPiGen Project, and it's been my pleasure and privilege to be involved in the work that we're going to talk about today.  Natalie: Really fantastic to have the 3 of you here today. So, we're going to take a slightly unusual approach to starting the podcast today and we're going to begin with Paul who's going to read us a poem from the book Helix of Love. Paul, over to you.  Paul: This is called Tap, Tap, Tap.  ‘Tap, tap, tap, I hold the egg to my ear. There it is again, tap, tap, tap. Run to get a torch and light through the shell, to see who's tapping from within. Chicken's home from work these days just for fun and the odd egg. Market stalls swapped for medicines, cash boxes for cough machines. We kept the apron though. Profound learning disability is our life now, most of it, learning about it, learning from it, surviving with it, despite. It's a subtle egg though, this. The shell is there, invisible, but there's a person inside, tap, tap, tap.  What are you trying to tell us about what the world's like for you? Are you bored? Do you hurt? Is your sister a love or a pain? Tap, tap, tap. I wish I could set you free.'  Natalie: Thank you, Paul. Such beautiful and powerful words. I wonder if you wouldn't mind telling us a little bit about that poem and your journey and maybe touch on what the EPPiGen Project has meant for you.  Paul: Wow, that's a lot to unpack in one go. I suppose the oddness of the metaphor is probably worth a mention. The way the project worked is that Bobbie and Rich collected together a proper poet, Dawn Gorman, and she led us through the process of kind of, she basically taught us all to be poets from scratch, it was… When you say it like that it was a hugely audacious project really to just collect all these randoms together in a room and throw a poet at them and see what happened.   And they trusted us, I suppose, and trusted Dawn that there was going to be something came out of this. But one of Dawn's techniques was that like each week we did… I think we did… Did we do 6 weeks, chaps? Which felt like a huge amount of time, but it went in milliseconds. But what she did every week was that she gave us either a poetic form to work with, like, you know, “This week we're going to learn how to do a haiku, or a sonnet,” or whatever, or she'd gone away and thought of a particular poem that she thought might resonate with us and then she'd bring that to the session. And she'd read a poem out and then say, “Right, what did you make of this? Go away and write what it inspires you to write.”    So, the poem that I wrote was, the inspiration for that session was a poem called The Egg by Richard Skinner. His poem was more about the form of the object itself, so, although that sounds really abstract, it really, really helped. So, every week it would be like Dawn threw this object into the group and said, “Right, okay, here's your new prompt, bosh, off you go.” And although that sounds like the most obscure way to deal with anything, because you get a structure around which to organise your thoughts it was just this like hugely powerful thing for everybody.    And so, the thing that came to mind for me was the metaphor of the egg rather than the egg itself and it just kind of chimed with all of us. Like we used to run the egg stall in Minehead farmers' market and so, I married into a country girl and so she had like 200 laying hens at one point, and so we had this whole market stall antics but also it spoke to so many things in one hit. So we gave up that part of our lives as our daughter Nenah's condition became more and more complex.    She was always, once we knew what her genetic condition was one of the few things that we knew from the get-go was that it was progressive. So we knew in advance that that was the case, but we didn't know what that meant. And so slowly but surely one of the things we had to do was give up our working life, you know, one week and one hour at a time, it felt. So part of the poem's about that as well, the shift in the poem from the comedy bit to the beginning to the more serious bits at the end, and it kind of felt like we gave those things up day by day but the poem kind of got to speak to that.   And then there's also the metaphor. Once you've got a good metaphor it's always good to run with it, you know? And so the idea of the metaphor of somebody who's got profound learning disabilities and can't speak being inside this shell and as parents you're always kind of peeking in from the outside to see what's going on within or to try and find ways, the idea of when you're checking to see if you've got a chick inside your shell, and you do this thing called ‘candle' where you hold the light to it, that I describe in the poem, and you like hold it to your ear and hear if there's movement going on inside. And you kind of, I don't know, I felt with a profoundly learning-disabled child that you always feel like you're doing that as a parent as well to see if what you're doing is, you know, if you're still communicating while you're trying to be a parent.  Natalie: Fantastic. Thank you so much for sharing that with us, Paul, both the poem and also your exploration of how you got to that point in writing that poem.  Tremendously powerful to kind of understand and hear about that experience.  Bobbie, if I can come to you. Paul referred to that project as kind of audacious, can you tell us a little bit about the origins of the Helix of Love but also why storytelling, especially through poetry, was so important for the EPPiGen Project?  Bobbie: Yes, of course, Natalie. But can I start by saying I was so pleased that you got Paul to speak for a while after because I always have to compose myself after hearing these poems because they really do hit so powerfully, however many times you hear them. And I think that is part of what we wanted to achieve with this project, we wanted to use innovative research methods, we wanted to be…  I love the word ‘audacious'; I'm going to borrow that.  We wanted to be audacious; we wanted to be courageous, and let me tell you, our Ethics Committee were a little bit worried about the sorts of things we told them we wanted to do. But we knew because we live and work in Brighton that the world is full of creative people and we'd already had such wonderful partnerships with people over the years, we knew that we could draw people into this project who would help us to work with this fabulous group of parents ,in a way that would give them, as Paul says, an opportunity to explore their own feelings and their own experience and share it as they wished.    In an earlier conversation with Paul, which he might find surprising that it's stuck with me so much, he used the word ‘extractive' and he said that he'd been involved in research before and looking back on it he had felt at times it could be a little bit extractive. You come in, you ask questions, you take the data away and analyse it and it might only be by chance that the participants ever know what became of things next. One of the real principles of this project was always going to be co-production and true collaboration with our participants, and the poetry project probably wouldn't have come about if it hadn't been for the passion of one of our participants who was sort of finding a love for poetry herself and said, “Can we try this next?” So, you know, it means so much to Rich and I that we ended up with this amazing book, but it's not our book, it's our poets', as we like to refer to them, book.   So, one of the things that we are so pleased about in this project is that our participants now have a variety of ways in which they can transport their voices into spaces that they previously found maybe alienating, challenging, and not particularly welcoming. And I think another wonderful upshot from this project has been how receptive people have been to the work. And it's a sort of commonly held myth that your average philosophy article has a readership of 3.4 people. Rich created a wonderful map to show how Helix has travelled round the world and touched thousands of people – I don't think that's an exaggeration – and we couldn't be more grateful for that as researchers because we feel as passionately about these subjects as our participants and it is they who have really got this project on the map. Paul, you were going to come in, I hope.  Paul: I feel like the one thing that this project really did was, I know PPIE is a phrase that's bandied round but this project kind of stripped that theme apart and took the ‘I' bit, this project is like built around inclusion and because it felt like, if we'd have just been jumping in a room with Dawn and told to get on with it, I don't think it would've worked as well. The idea that it was kind of curated by Bobbie and Rich, we very much felt like our hands were held through the process, and after them having had to kick down doors in the Ethics Department to be able to get the project through at all, it's like “What are you going to do to these poor parents?” having gone through that process themselves behind the scenes, then to kind of feel like we were guided through this process. And we were guided and held, and they were super-aware of all of us. And the fact that every time you tell these stories as a parent who's gone through them there's a cost. And we've had this discussion with the panel before and the communication group, about the fact that every time you come to a parent and say, “Tell us your story” there's a cost.   And so, they were aware of that, and they held that in both of their hands and so it couldn't have been anything other than this collaborative project by the time we'd finished.  Advert: The Genomics England Research Summit is fast approaching and registration is now open! Join us for this one day in-person event on Tuesday 17 June 2025. This year's agenda dives into rare condition diagnosis, cancer genomics, pharmacogenomics, therapeutic trials, and the impact of emerging technologies. Hear from leading experts and inspirational speakers as we explore the present and future of genomics and the latest research and technology from the Genomics England research community. Keep an eye on the website, genomicsresearchsummit.co.uk for all the details and to secure your spot. Spaces are limited, so don't miss out. We'll see you at the summit! Natalie: We're going to hear a clip from Lisa Beaton, a member of the participant panel at Genomics England, who shares what it has meant for her to take part in the project.  Lisa: It was an amazing opportunity. I had a huge sense of imposter syndrome actually when I as invited to join, because I was aware of some of the people who'd already taken part in the project and although I can bring lived experience to the table I don't really consider myself as a creative writer or anything like that, although I do enjoy it. When I first started in the group, we were just doing free-flowing writing. It was really cathartic, and I didn't expect that in any way, shape or form. To put pen to paper without necessarily having any strategy in mind, just letting the thoughts come out and ramble away, I didn't really know what was going to come blurting out onto my notepad, and reading some of it back was moving but it was frustrating. It was moving, it was everything really, that opportunity just as a safe space, knowing I didn't have to share it with anybody if I didn't want to but I could, and I could just, I suppose I would call it almost like a brain fart, it just rambled away and maybe it was a way of downloading some of the emotions that I was carrying.   As the project went on and we explored different creative mediums I really enjoyed that and found different skills that I wouldn't have thought about. And it was very thought-provoking, being able to go back and think about some of our very early experiences, which is, not that I've buried them but it's just you move on to deal with the here and now, and it brought me back to some of those very raw emotions of the first days which I think are, I hope, helpful to certainly the medical community in terms of thinking about how they talk to new parents going through similar situations. I was very grateful.  Natalie: Rich, I'd like to come to you now. As Bobbie and Paul have both mentioned, the outputs for this project have really spread far and wide and maybe beyond the kind of academic circles that you might typically think. I'd really like to hear from you about how you think the project has helped healthcare professionals, particularly really enabling them to understand a little bit more about what it means to be part of a genomic healthcare service and the journey that patients and families go through. Would you share a little bit about your experience in the project, particularly for healthcare professionals?  Rich: Yeah, I mean, that was one of the things that when Bobbie and I set out to do this, that was one of the real aims, was to sort of help healthcare professionals have a bit more of an insight into what it means to access genomic medicine services from a patient or family perspective. And, as Bobbie said, there were 2 ways we could have gone and done this; we could've done some sort of conventional social science interviews, written that up in a lovely social science or philosophy journal article and no one would've probably read it, but instead we thought about the power of the arts to actually change in terms of how we were sort of collecting and collating people's stories and then how we were sharing and disseminating those stories as well. And I think the medium by which stories are told affect the kind of stories that get told, as Paul was sort of hinting at earlier.    When we ask patients to tell us their story, you know, there's a level of expectation there about what people are being asked to say in a form in a way, and certainly we didn't get people in a room and say, “You must write about genomics.” So many of the poems in the collection aren't really about sequencing or big data, they're about these kind of much wider themes of everyday life. And I think that's been really powerful in allowing healthcare professionals to sort of understand for patients obviously genomics is really important but it's not the be all and end all of everything that's going on in their lives, you know, there are so many other pressures, so many other hopes and desires, and people want an opportunity to express some of those positive aspects of their life with their loved ones and it not just be medicalised all of the time.    Again, as Bobbie said, it's also opened up our research travelling really well and just become something that's really accessible for people to pick up and read through, and I've had conversations with healthcare professionals that have said, “Oh I read through the book of poetry and it's made me realise all of these things.” Language particularly has been a really prominent theme that people have reported, telling us they've learnt a lot about it, and thinking about how they write their letters and how they communicate with people. And obviously this isn't new, you know, bioethicists for years have been talking about the need to communicate very carefully, very precisely and in a caring way, but I think there's something about communicating those messages through a really powerful art form like poetry through patients' own words that allows clinicians and healthcare professionals to sort of really get the impact of that in a very, very powerful way.  Natalie: Thanks, Rich, really helpful insights there. I really want to pick up on your point about language and come back to Paul on that because I know that's a topic area that can often be, you know, hugely sensitive to families that the medicalisation, the terminology that's used, especially, you know, complex areas like genomics, coming back to this term we mentioned earlier about being sort of alienating. How have you found that the work through the EpiGen project and Helix of Love, has it potentially helped the way that families can think about the right sorts of language and enable health professionals to sort of approach some of these questions in a slightly more human way? Paul: Difficult to say. It's a very, very live topic all the time. There's like a backchat communications channel with the Genomics England panel where, because we all go along and do this thing, but we all share that genomics common thread in our lives. One parent was breaking their heart about the fact that they'd had sight of genetic science reports that basically described their child, and children like them as ‘lumped together' in a project, and she was gutted about it. And we all were as well, and we were all open-mouthed about it. The whole idea of kind of separating the science and the science language out from the people who are involved, it is our job, isn't it, you know, our job as the panel members is to remind people that those are people, not statistics. But it's a really live subject and the more people, the more professionals who can be reminded of that on a daily basis and the more we can find kind and open ways to deliver that message to professionals, and every single day that we do that makes a difference, I think. If one parent has to get less of a letter like that or one professional thinks more carefully about how they phrase stuff before it goes out the door, then that's one less parent who's got to go through that.  Natalie: Absolutely. And I'm thinking about that insight. I suppose the anticipation and the realisation to healthcare professionals about the impact of the way they approach things, the language they use, the kind of mindset they might adopt with parents and families, one really important aspect of the project was to do sort of preparedness and the idea that you should be able to anticipate and plan for and acknowledge some of the ethical challenges that might come through when you're dealing with questions of genomic healthcare where there may be lots of uncertainty, there may be a long journey to go through.   Bobbie, can I come to you to help us unpack this notion of ethical preparedness as a core theme for EPPiGen? Help us understand what that means in kind of simple terms and why does it matter for those who are working in the genomic medicine and healthcare space.  Bobbie: I think the way in which most people will have heard of this concept of preparedness is in relation to disaster planning. We know that some of the good things we try and do in life are also potentially fraught with challenges and difficulties just because of their complexity and because of the wide range of people and organisations that will be involved. Can we take this idea of preparedness and almost say, “You have a moral responsibility to be ethically prepared when, for example, you embark upon a really dramatic change in healthcare delivery or an introduction of fantastic new healthcare innovation”?    And genomics seemed to be the perfect case study for this. We then had to say, “What does that actually mean in practice?” And I think here we wanted to move away from the idea that you can ethically prepare people by putting a small albeit very expert and clever group of people in a room to write guidance and regulations, those things are needed and they're useful. But it's actually much more important to almost recruit everybody, to bring everybody up to speed, so that the ethical challenges aren't a complete shock to those who are delivering the service in the frontline, so that those who plan systems actually think whilst doing so of the ethical challenges that can be posed by the tasks they're attempting to achieve.    And I was a sort of founder member of the Ethics Advisory Committee at Genomics England, and it was so interesting in those early days because there were no patients, there were no participants. We were sitting alongside people whilst they designed and put in place basic processes, strategies and ethics was a part of that. And a really important part of that to me, at those meetings, was hearing what the potential participants had to say about it because, again, the Participant Panel was involved. And I found that those were my people, those were the people who were worrying about, concerned about the same things as I was.  So, I think to be prepared we have to take on the responsibility of giving people who work in ethically challenging areas opportunities to come together to acknowledge the complexity of the task, to share strategies and tools, but also, very importantly, to not become divorced from the people that they are attempting to serve, because in fact we feel that this part of our project, and our project is much bigger than this and we've done some fantastic things working with healthcare professionals, medical scientists, etc, etc, but this part of the project is an attempt to say, “We can better prepare families as well by ensuring that we tell them that their voices are valuable, that they're important, and they help rather than hinder healthcare professionals in doing their jobs.”  Natalie: That's a really important point around the idea that this approach can help, can be positive. Because I think sometimes you think about preparedness and, and quite often with ethics it's about risk, it's about, you know, “How do we avoid the risks?” but there's a very positive story to tell about taking a more preparedness-type approach to thinking through ethical complexities, challenges and so on, both for health professionals and, as you say, for families. I wonder if you could just talk a little bit more about the kind of positive aspects that that can bring to everyone in that genomics healthcare journey, both the health professionals and the families.  Because I think sometimes it's easy just to think that it's mostly about sort of avoiding the risks and the pitfalls, and that might be harder to engage with people if you take that sort of risk-based approach.  Bobbie: Yeah, it's an interesting one. I think the ability to confront risk and uncertainty is a sign of maturity. And we find medical students, for example, hate any sense of uncertainty; they want to be told how to do something and they want to know that they'll be able to do that thing and get it right. And our job is often to say, “Well it's not going to be as easy as that, in fact it might be impossible, and here's what you have to do instead and here's how you allow yourself to fail or to not achieve in the way that you want but still do something really meaningful for the people that you're caring for.”  So, I think there's that aspect of saying, “It's part of medical education, it's part of how we should think in organisations that wherever you take risks, wherever you try to push frontiers, blur boundaries…”  I mean, genomic medicine has done something really interesting in terms of blurring the boundary between scientific research and clinical care. Wherever you do these things there are going to be challenges but those challenges, they're fascinating, they're interesting, they can bring us together. If we've got a shared will to get through them, you know, to make things work, then it's enlivens what you're doing; it's not a barrier.   I sort of began teaching and working in the space of bioethics right back in the ‘80s, which is a shock to you, I'm sure, but in those days I'm afraid that ethics was seen as a block, a barrier, a hurdle that people had to get over or through. And I think there's still a sensitivity, and certainly, I myself have been sort of challenged on critiques that I have offered to say, “Oh that's a bit harsh.” But I think what ethics attempts to do now, and certainly through really putting a positive spin on this idea of working together to establish ethical preparedness in important spaces, is to show that actually ethics can be very facilitative, it can be very supportive, and it can help people. It's not a surveillance mechanism, it's actually another clinical tool and something that, you know, people should seek support around.  Advert: If you're enjoying what you've heard today and you'd like to hear some more great tales from the genomics coalface, why don't you join us on the Road to Genome podcast, where our host, Helen Bethell, chats to the professionals, experts and patients involved in genomics today. In our new series, Helen talks to a fantastic array of guests including the rapping consultant, clinical geneticist Professor Julian Barwell about Fragile X Syndrome, cancer genomics and the holistic approach to his practice. A genuine mic-drop of an interview. The Road to Genome is available wherever you get your podcasts. Natalie: Rich, if I could come to you thinking about that reframing, I suppose, in your own research practice as an early career researcher, whether you're seeing that maturity in approach in thinking about some of these really complex, knotty ethical questions in genomics, are you seeing a greater appreciation for those?  And where do you think you're going to take your research as a result of this project in that space?  Rich: Yeah, thanks, that's a great question. Yeah, I think so, and I think one of the things that's really been revealing in this is the appetite for this kind of work in the sort of genomics sector, an appetite for thinking about the sort of complex ethical issues, for engaging with kind of arts-based research, for sort of finding new language and new spaces to involve patient and family perspectives and stories and think about how we can learn from them.    I think in the highly scientific, highly technical space of genomics we often assume that everyone wants numbers and hard data but actually I think the way that this work has travelled, the amount of invitations we've had to sort of exhibit this work and talk to healthcare professionals and scientists about this work shows that there's this really rich appetite for thinking about this complexity and doing that work of ethical preparedness, as Bobbie's talked about, and I think it's fascinating. And I know a lot of the participants who joined in our project have also sort of had opportunities from being involved in our work and found that there are people that want to listen to their voices and hear from them and learn from them as well. So that's been really exciting, and I hope it will continue and I hope there's opportunities for much more interdisciplinary collaboration in the genomics space with philosophers, with social scientists with ethicists, with artists and, importantly, with patients.    Paul: You mentioned the idea that certainly the poetry at the very least has allowed those voices to get into different spaces, and I think when those things first started happening it was when we at least as the people who'd written the poems felt that there was a huge big impact from this stuff. And I wasn't the first one to read one of these poems out loud, and in a way the collection of poetry became bigger than the sum of its parts in a funny kind of a way. And I can't remember but somebody read one of the poems at a conference somewhere and they said at the end of it that you could've heard a pin drop, and it was just that thought that actually with a big audience expecting kind of quite dry subject matter about genetics, to have felt that moment where the poem got launched off the stage and then it impacted on the audience and then, the way they described it, you could almost kind of feel them describing the ripples of the poem just like spreading out amongst this kind of silent audience and everyone kind of taking this kind of mental sigh of like “Oh that's what it feels like.” And the idea of that happening was when, for me anyway, when we knew that what we'd created was bigger than the sum of its parts and had its own legs, Bobbie and Rich had been the Dr Frankensteins of this kind of amazing, beautiful monster. Natalie: Obviously the poetry's got into your soul, Paul, the metaphors are fantastic. But just to make sure we bring in even more participant voices and perspectives into this we're just going to hear now from Jo Wright, who's another member of the participant panel, who's going to share what the project and the participant in it has meant for her.  Jo: So being part of the EPPiGen Project, it helped me to find my voice in an area that was relatively new to me, and also it was a way to take control of my own experiences rather than feel like I'm being swept along by a lot of systems.    And there were things that I really value that I thought contributed to making the project so successful. One was that they asked the question “What is this experience like for you, the experience of being part of a research project, the 100,000 Genomes experience of waiting, the experience of having your data in the library?” And no one had asked that before. You go to your appointments and you're in the system and, you know, it's kind of, everyone was finding their way to some extent because it was new for all the clinicians as well, but the fact that they asked, because no one asked that before, I don't have an outlet for that.     And then the other thing was that it was completely open so there was no research interview or questionnaire to answer, no expectation about what it was going to look like at the end. And I think working that way really strengthened the connection between us as parents of children with rare conditions and then also our relationships with Bobbie and Rich as the researchers and with the wider clinical community when they started to see our work and respond to it. So it was a way to understand people's individual experiences but it also made us feel connected and empowered through sort of like shared human experience, and that could be between us as the participants but also shared experiences between us and the researchers or us and clinicians and scientists that were looking at what we've done.  Natalie: So we've heard lots about the experience of participating in this fantastic EPPiGen Project, the kind of creative storytelling methods, the audacious methods that have been used, and some fantastic impacts beyond the kind of typical what could be quite dry sort of academic circles that this kind of work has spread out to.  I'd be really interested to hear from each of you about the takeaways, what you've learned, what's changed for you and what you'd like our listeners to really understand about this project and the work, and the sort of outputs from it and the ways it might continue to have resonance and impact going into the future, so whether people are patients, families, clinicians, researchers. What would you like people to remember and what's affected you most about the project?    Bobbie, I might start with you.  Bobbie: I think we have to always be very careful when we get excited about something - and the ‘we' here are the people in the health community, the education community, etc - to remember. As Rich said earlier, that this is only ever going to be quite a small part of other people's lives. You know, we've all devoted big parts of our careers, our enthusiasm, to thinking about genomics, to working in this space. I would really like people to pick up the book and work to understand a bit better about the everyday lives, the hopes, the expectations, the fears of the families who may or may not get a diagnosis, may or may not get on a good treatment path, all of whom want the best for themselves and everybody else from this venture.    But, as Paul knows better than most, it won't come to everybody, and we don't want anybody to be forgotten along the way. The people that signed up for Genomics England as participants were pioneers alongside medics and the scientists, and in these early years we want their experience to be recognised, and their experience goes much beyond their interaction with Genomics England and, unfortunately, all the work that we've produced shows how many challenges families have to face to secure a good life for their children, and I just want us all to just keep that in mind.    Natalie: Incredibly important to maintain that focus, that awareness. And, as you say, Bobbie, there's an interesting balance where there is a need for the drive and the innovation and the ambition to help ensure that we are pushing at the forefront of medical research but not leaving people behind and not ever forgetting, as you say, the experience of people who are actually at the forefront of this research and of genomic healthcare.   Paul, could I ask for your perspectives on this, and particularly how you see patient voices being involved in the future of genomic medicine, especially in light of your experience in the EPPiGen Project?  Paul: I think the biggest surprise and biggest takeaway for me was the project gave me, I mean, I can't speak necessarily for all the other poets, but you only need the evidence in the book itself. They gave us the tools, the project gave us the tools to find a different way to get at all of those things inside of all of us who were going through that experience. So it gave us a way to talk about all of those things and a way that was I suppose slightly removed to start with. It's almost like a different lens or a different filter to give us a way to look at all those things, almost like a magnifying lens; you can either hold it really close to your eye and it gives you like a blurry view of the world that goes on and you can relax behind that and find a way to explore things in a funny way or an interesting way, but you can also go really close into the subject and then you've got to deal with the things that are painful and the things that are difficult and the things that have had an impact.    But, because you've got that tool and you're used to using it or you're familiar with using it, it then gives you that safety. That's how I felt about it anyway, it was a massive tool to be able to get behind all of these things that I didn't even know I was feeling, or I knew they were making me uncomfortable, but I didn't know what they were or what name to give them. So the poetry gave us a chance to get behind all of that. Having read the poems, it feels like it's that for everybody but obviously you'd have to speak to them to know, but it certainly felt like that for me.  Natalie: And, Rich, your perspective.  What are you taking forward from the project, so what would your sort of key takeaway be?  Rich: I think it shows what is possible under that PPIE acronym. And there are many ways to do that involvement and engagement, it doesn't have to be a sort of dry tick-box exercise, there are much more creative ways to bring people's lived experiences and perspectives into conversations with genomics. So really, I suppose it's a call for other people to explore working in this way as well and think about what other kind of creative outputs could work here. I mean, we've had huge success, and I think a really interesting impact from working in this way.    And certainly as an early career researcher it's been really formative in my sort of academic journey, you know, reaffirmed that this is the kind of work that I want to do, working in this really co-productive way. And I think it's possible, it can be done, and, you know, ultimately it's just been a real privilege to do this kind of research, to sort of be trusted to sort of hold a space together for sharing people's stories and give people a platform to share some really powerful profound stories. And going back to what Paul was saying earlier, I think he hit the nail on the head, as he very often does, this is about evoking people's experiences, not just explaining people's experiences, and allowing those stories to travel.  And we don't know where stories will travel, we don't know how stories will travel, we don't know how stories will be received, but we know that they do sort of travel and they do have legacy and they stay memorable to people, they have emotional resonance. So, the impact of this work can often be hard to sort of pin down really specifically, but we know those stories are out there and people are listening and changing their practice as a result.  Natalie: We'll wrap up there. I'd like to thank our guests, Paul Arvidson, Professor Bobbie Farsides and Dr Rich Gorman, for joining me today as we discuss the EPPiGen Project. We heard some powerful insights from patients and families about their experiences, and why ethical preparedness is so important in the context of genomic medicine. If you would like to hear more like this, please subscribe to Behind the Genes on your favourite podcast app. Thank you for listening. I've been your host, Natalie Banner. This podcast was edited by Bill Griffin at Ventoux Digital and produced by Naimah Callachand. 

Professor Hank Greely is the Deane F. and Kate Edelman Johnson Professor of Law and Professor, by courtesy, of Genetics at Stanford University. He is also the Director of the Stanford Center for Law and the Biosciences. He talks about his career path into bioethics and ethical considerations for organoids, bodyoids, and embryo models. He also discusses the potential future of reproduction, including gametogenesis, ectogenesis, and genetic selection and editing of embryos.

The Bulletin welcomes Lydia Dugdale for a conversation about measles, public health, and the creative work of God. Find us on YouTube. In this episode of The Bulletin, Clarissa Moll speaks with Lydia Dugdale, professor of medicine at Columbia University's medical center and director of the Center for Clinical Medical Ethics. They discuss a recent measles outbreak in Texas, vaccinations, and Robert F. Kennedy Jr.'s statements on the disease.   GO DEEPER WITH THE BULLETIN: Join the conversation at our Substack. Find us on YouTube. Rate and review the show in your podcast app of choice. ABOUT THE GUEST:  Lydia Dugdale is the Dorothy L. and Daniel H. Silberberg Professor of Medicine at the Columbia University Medical Center and director of the Center for Clinical Medical Ethics. She also serves as codirector of clinical ethics at NewYork-Presbyterian Hospital, Columbia University Irving Medical Center. A practicing internist, Dugdale moved to Columbia in 2019 from Yale University, where she previously served as associate director of the Program for Biomedical Ethics. Her scholarship focuses on end-of-life issues, the role of aesthetics in teaching ethics, moral injury, and the doctor-patient relationship.  ABOUT THE BULLETIN: The Bulletin is a weekly (and sometimes more!) current events show from Christianity Today hosted and moderated by Clarissa Moll, with senior commentary from Russell Moore (Christianity Today's editor in chief) and Mike Cosper (director, CT Media). Each week, the show explores current events and breaking news and shares a Christian perspective on issues that are shaping our world. We also offer special one-on-one conversations with writers, artists, and thought leaders whose impact on the world brings important significance to a Christian worldview, like Bono, Sharon McMahon, Harrison Scott Key, Frank Bruni, and more. The Bulletin listeners get 25% off CT. Go to https://orderct.com/THEBULLETIN to learn more. “The Bulletin” is a production of Christianity Today Producer: Clarissa Moll Associate Producer: Alexa Burke Editing and Mix: Kevin Morris Music: Dan Phelps Executive Producers: Erik Petrik and Mike Cosper Senior Producer: Matt Stevens Learn more about your ad choices. Visit podcastchoices.com/adchoices

Guest: Eva Parker, MD, FAAD Rising temperatures, worsening air quality, and extreme weather events appear to be increasing the prevalence and severity of skin diseases. Dr. Eva Parker, Assistant Professor of Dermatology and Core Faculty at the Center for Biomedical Ethics and Society at Vanderbilt University Medical Center, shares strategies for dermatologists to improve climate literacy, reduce their carbon footprint, and educate patients on protecting their skin against climate-related impacts.

We are thrilled this week to bring you the Season 1 Episode 4 recap and analysis 00:00:14 for the Last of Us TV Show as well as an amazing interview with Dr. Jennifer Gleason 00:44:10. Dr. Gleason is a professor teaching philosophy and biomedical ethics at the University of Alabama and walks us through the foundations of the field and how to view characters and their decisions in The Last of Us through various ethical lenses. Enjoy!

Pediatric clinicians have obligations to their patients and law enforcement. But it can be challenging to figure out how to navigate situations where these obligations conflict or where there is uncertainty about the right thing to do. This has increased with recent exectuive branch agendas. Dr. Alyssa Burgart is the Associate Director of Pediatric Bioethics at the Stanford Center for Biomedical Ethics, Medical Director of Ethics for the Stanford Medicine Children's Health, and writes about ethics and culture in her substack Poppies & Propofol. She joins Dr. Wolfe to discuss the ethics of interacting with law enforcement, speficially immigration and customs enforcement (ICE).

Stand Up is a daily podcast. I book,host,edit, post and promote new episodes with brilliant guests every day. This show is Ad free and fully supported by listeners like you! Please subscribe now for as little as 5$ and gain access to a community of over 700 awesome, curious, kind, funny, brilliant, generous souls The Good Stuff HEADLINES AND CLIPS 30 mins Get Jeff's new book The Web We Weave Why We Must Reclaim the Internet from Moguls, Misanthropes, and Moral Panic Jeff Jarvis is a national leader in the development of online news, blogging, the investigation of new business models for news, and the teaching of entrepreneurial journalism. He writes an influential media blog, Buzzmachine.com. He is author of “Geeks Bearing Gifts: Imagining New Futures for News” (CUNY Journalism Press, 2014); “Public Parts: How Sharing in the Digital Age Improves the Way We Work and Live” (Simon & Schuster, 2011); “What Would Google Do?” (HarperCollins 2009), and the Kindle Single “Gutenberg the Geek.” He has consulted for media companies including The Guardian, Digital First Media, Postmedia, Sky.com, Burda, Advance Publications, and The New York Times company at About.com. Prior to joining the Newmark J-School, Jarvis was president of Advance.net, the online arm of Advance Publications, which includes Condé Nast magazines and newspapers across America. He was the creator and founding managing editor of Entertainment Weekly magazine and has worked as a columnist, associate publisher, editor, and writer for a number of publications, including TV Guide, People, the San Francisco Examiner, the Chicago Tribune, and the New York Daily News. His freelance articles have appeared in newspapers and magazines across the country, including the Guardian, The New York Times, the New York Post, The Nation, Rolling Stone, and BusinessWeek. Jarvis holds a B.S.J. from Northwestern University's Medill School of Journalism. He was named one of the 100 most influential media leaders by the World Economic Forum at Davos. 60 minutes in I start with Dr Arthur Caplan who is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU School of Medicine in New York City. Prior to coming to NYU School of Medicine, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Caplan has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.  He received his PhD from Columbia University Follow Dr Caplan on Twitter and let him know you heard him here! The Stand Up Community Chat is always active with other Stand Up Subscribers on the Discord Platform.     Join us Thursday's at 8EST for our Weekly Happy Hour Hangout!  Pete on Threads Pete on Tik Tok Pete on YouTube  Pete on Twitter Pete On Instagram Pete Personal FB page Stand Up with Pete FB page All things Jon Carroll  Follow and Support Pete Coe Buy Ava's Art  Hire DJ Monzyk to build your website or help you with Marketing

In our 50th episode, we sit down with Henry Dobson. This podcast delves into the world of AI ethics. We discuss the challenges of applying numerous ethical principles to AI, the gap between theory and practice in AI ethics, and the unique considerations for AI in the Pacific Islands. We also explore the controversial topic of AGI, discussing its feasibility, potential consequences, and the implications of creating machine consciousness. About Henry Dobson Henry Dobson is a Research Fellow at the Centre for Biomedical Ethics at the National University of Singapore. Henry holds a PhD in AI ethics from the University of Melbourne, and a Master's degree in philosophy of mind from Monash University. He also spent several years in London working with entrepreneurs and early-stage startups focusing on product design and business development. About The AI Asia Pacific Institute (AIAPI). The AI Asia Pacific Institute (AIAPI) is a global nonprofit organization committed to strengthening the Asia-Pacific economies by facilitating the responsible development and adoption of artificial intelligence. The AIAPI serves as an independent catalyst, uniting stakeholders to guide AI's responsible development through interdisciplinary research, awareness raising, international collaboration, and policy advisory activities.

In this month's episode of the Scope of Things, host Deborah Borfitz gives you the latest news on the fallacy of a survival benefit for cancer patients participating in clinical trials, how and why federally qualified health centers are getting involved in studies, efforts to disrupt the current practice of excluding pregnant and lactating women from participation, great news about the impact of precision medicine on the outcomes of kids suffering from aggressive cancers, and more. Jonathan Kimmelman, PhD, Professor of Biomedical Ethics at McGill University, also joins Deborah to discuss current dilemmas in clinical development and how research standards are trending. Kimmelman talks about the ethical implications when trial sponsors don't fully disclose how patient input is utilized in drug development, key policies that are necessary and would have a big impact on regulators, and what would-be participants can do to be more informed about trials. 

Stand Up is a daily podcast. I book,host,edit, post and promote new episodes with brilliant guests every day. Please subscribe now for as little as 5$ and gain access to a community of over 700 awesome, curious, kind, funny, brilliant, generous souls Check out StandUpwithPete.com to learn more 25 minutes in I start with Dr Arthur Caplan who is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU School of Medicine in New York City. Prior to coming to NYU School of Medicine, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Caplan has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.  He received his PhD from Columbia University Follow Dr Caplan on Twitter and let him know you heard him here! Join us Thursday's at 8EST for our Weekly Happy Hour Hangout!    Pete on Tik Tok Pete on YouTube Pete on Twitter Pete On Instagram Pete Personal FB page Stand Up with Pete FB page All things Jon Carroll  Follow and Support Pete Coe    

In this episode, host Eli Roberson, PhD, interviews Daphne Martschenko, PhD, an assistant professor at the Stanford Center for Biomedical Ethics. Dr. Martschenko discusses her unconventional career path, leading to her current focus on the social and ethical implications of human genetic and genomic research. The conversation touches on the intersection of genetics and education, particularly examining how genomics research intersects with societal narratives, racial disparities, and historical beliefs. The discussion also highlights the importance of diversity, equity, and inclusion in scientific studies, emphasizing the need to consider diverse perspectives in the design, conduct, and communication of research.

I had the pleasure of sitting down with Raun Kaufman to talk about his incredible journey of personal recovery from severe autism and his dedication to helping others on the spectrum. He is an international lecturer and graduate of Brown University with a Degree in Biomedical Ethics and author of Autism Breakthrough. As a child he was diagnosed with so-called “severe” non speaking autism and recommended lifelong institutionalization. Instead his parents worked with him to blossom, grow, and accomplish everything his parents were told he would not. We dove into the critical need to create a safe environment for autistic individuals, to truly understand their unique ways of experiencing the world, and to clear up some common misconceptions about things like attention span and mind blindness. Raun opened up about his own methods for reaching out and connecting with autistic individuals by finding common ground through shared interests, and he stressed how vital it is to approach autism with both an informed perspective and a sensitivity to past trauma.    I couldn't help but connect Raun's insights with my own experiences with my daughter Lilly, especially when it comes to the power of forming deep, authentic emotional bonds. Ron also discussed his book and the various resources he's created to offer support to those with autism.   Grab the Hyper Focus Journal While It's On Sale - Use the Code HYPER30 for 30% Off!   Ways to Work with Me:  Follow Me on Instagram Follow the Podcast on Instagram Get Podcast Merch  www.mindywender.com www.hyperfocusmentor.com Episode Outline:  Raun's professional and personal experience (00:00:58)  His childhood diagnosis and treatment (00:03:31)  Parental instincts with therapeutic approaches (00:17:06)  The Safe to Connect Autism Approach (00:34:58)  Neuro Crash and Dysregulation (00:35:40)  Understanding the ACT Protocol (00:39:36)  Social Attention Span and Mind Blindness (00:56:45) Referenced Resources:  www.autismcrisisturnaround.com www.raunkkaufman.com  Raun's Facebook Page Find Autism Breakthrough by Raun Kaufman on Amazon or Audible Lilly's Story Episode   If you enjoyed this episode, share with a friend and leave a rating & review of this show! I appreciate it so much and love reading them! 

Buy Tickets for the Stand Up PodJam Stand Up is a daily podcast. I book,host,edit, post and promote new episodes with brilliant guests every day. Please subscribe now for as little as 5$ and gain access to a community of over 700 awesome, curious, kind, funny, brilliant, generous souls Check out StandUpwithPete.com to learn more 24 mins Dr Arthur Caplan who is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU School of Medicine in New York City. Prior to coming to NYU School of Medicine, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Caplan has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.  He received his PhD from Columbia University Follow Dr Caplan on Twitter and let him know you heard him here! Join us Thursday's at 8EST for our Weekly Happy Hour Hangout!  Pete on Threads Pete on Tik Tok Pete on YouTube  Pete on Twitter Pete On Instagram Pete Personal FB page Stand Up with Pete FB page All things Jon Carroll  Follow and Support Pete Coe Buy Ava's Art 

E328– Inner Voice – A Heartfelt Chat with Dr. Foojan. In this episode, Dr. Foojan Zeine chats with DAVID SCHENCK, the former Director of the Ethics Program at the Medical University of South Carolina and was on the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center faculty. He co-authors two previous books on ethics and healing in healthcare, Healers: Extraordinary Clinicians at Work and What Patients Teach: Everyday Ethics of Healthcare. Schenck taught philosophy and religion for 20 years and has published widely in bioethics, philosophy, and religious studies. He was the founding executive director of a free medical clinic, a healthcare advocate for the homeless, and a 25-year hospice volunteer. His co-author, SCOTT NEELY, is a minister of the Unitarian Universalist Church of Spartanburg, South Carolina. He serves as a strategist for Speaking Down Barriers, an organization that uses art and facilitated dialogue to build bonds across the differences that divide us. He has helped develop LGBTQ Theologies, a regional network of congregations supporting LGBTQ+ people and issues, and the Fund to Support Latinx Immigrants, a statewide coalition providing direct assistance to immigrants during the COVID-19 pandemic. A graduate of Harvard Divinity School, he has taught at the University of South Carolina-Upstate and Wofford College. In this segment, we explored their latest book, “ Into The Field of Suffering – Finding the Other Side of Burnout.” Check out my website: www.FoojanZeine.com.

Sorry, folks, it's official: it's the end of sex.* Henry “Hank” Greely, Professor by courtesy of Genetics at Stanford School of Medicine, Deane F. and Kate Edelman Johnson Professor of Law, and Director of the Center for Law and the Biosciences, is very interested in how new biomedical technologies impact assisted reproduction. He's authored two books: The End of Sex and the Future of Human Reproduction in 2016, and CRISPR People: The Science and Ethics of Editing Humans, which published in 2021, and is Chair of the Steering Committee of the Center for Biomedical Ethics, among other impressive mouthfuls. In this episode, Ruby, Anne, and Hank dive into the changes that are already happening in human reproduction — and the possible changes to come. In addition to the scientific challenges, what are the ethical and legal questions we'll need to tackle as the landscape changes? Many of us became aware of genetic questions with Dolly the cloned sheep and the controversy over stem cells and how they might be used to repair damaged bodies. But Hank took the question even further, asking, What happens when we can make eggs and sperm from skin cells? Does that signal the end of human reproduction as we know it? Hank can pinpoint the origin of his curiosity to October 19, 2010 in Muenster, Germany — a conference talk on how induced pluripotent stem cells (iPscs) could be used to make other cells, including, the speaker said off-handedly, sperm and eggs. Wait, what? Science fiction? Maybe not. If you're curious about the possible future of fertility (and sex), this is the episode for you. Be sure to check out the book as well. There's not only theory about what the future could hold but also a well-researched history of how we've gotten here  As always, please rate and review, and most of all, share the episode and show with anyone you think could benefit.  *Spoiler: New technologies might mean the end of sex for reproduction and the start of sex purely for pleasure. So the news isn't bad after all.  Learn more about Hank Greely on the Stanford Law School Directory: https://law.stanford.edu/directory/henry-t-greely/ Find more episodes from Ruby and Anne at https://thewholepineapple.com.   Resources mentioned: Purchase the book from the Harvard University Press: https://www.hup.harvard.edu/catalog.php?isbn=9780674984011 Episode 29: My Embryos are Mosaic? https://thewholepineapple.com/episode-29-my-embryos-are-mosaic-interpreting-your-pgt-results/  

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Enjoy this episode from playing god? Show notes:In addition to Andrea Rubin, this episode features interviews with:Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation. Making bioethics integral to decisions in healthcare, policy and research. Learn more at greenwall.org. See omnystudio.com/listener for privacy information.

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Show notes:In addition to Andrea Rubin, this episode features interviews with: Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation. Making bioethics integral to decisions in healthcare, policy and research. Learn more at greenwall.org. See omnystudio.com/listener for privacy information.

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Enjoy this episode from playing god? Show notes:In addition to Andrea Rubin, this episode features interviews with:Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation. Making bioethics integral to decisions in healthcare, policy and research. Learn more at greenwall.org. See omnystudio.com/listener for privacy information.

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Show notes:In addition to Andrea Rubin, this episode features interviews with: Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.See omnystudio.com/listener for privacy information.

Alaska Region Director of Ethics for Providence Health & Services, Mark F. Carr, MDiv, PhD, studied with James Childress, PhD, one of the world's premier “principles-based” bioethicists at the University of Virginia. He mastered competencies in Jewish, Christian, Islamic, Philosophical, and Bio, ethics, focusing his dissertation on moral decision making methods in clinical contexts. In addition to the chapter he contributed to A House on Fire, he wrote and helped edit a number of books including, Passionate Deliberation: Emotion, Temperance, and the Care Ethic in Clinical Moral Deliberation and World Religions for Healthcare Professionals. As a professor at Loma Linda University he directed the Master of Arts degree in Clinical and Biomedical Ethics and served as the Theological Co-Director for the Center for Bioethics.ReplyForwardSee omnystudio.com/listener for privacy information.

DAVID SCHENCK is the former Director of the Ethics Program, Medical University of South Carolina, and was on the faculty of the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. A leader on ethics in healthcare and a long-time hospice volunteer, David Schenck is familiar with feeling overwhelmed and helpless while trying to help others. Spurred by the toll of the COVID-19 pandemic on frontline workers, he set out to reframe common ideas about caregiver burnout. The result, Into the Field of Suffering: Finding the Other Side of Burnout. Drawing on hundreds of conversations with healthcare workers and caregivers, patients and families, Schenck offers a radically different perspective on caregiving. Join us when David Schenck offers simple practices, caregivers can use to develop awareness and skills to avoid burnout and find renewal on this installment of Leonard Lopate at Large.

Advance Directives in Asia: A Socio-Legal Analysis (Cambridge UP, 2023) , edited by Daisy Cheung and Michael Dunn is the first book to consider the concept of advance directives in Asia. It is unique in its depth and breadth as it brings together an extensive number of Asian jurisdictions to draw out the ways that advance directives are regulated in law and practice across the region. In their analysis Cheung and Dunn provide overall observations towards a concept of "generative accomodation". As a concept, generative accomodation has the potential to foreground new explorations of bioethics in Asia and globally. It also seeks to understand the role of the family in medical decision making. These are key concerns that come through in this comprehensive and groundbreaking book. It will be useful for regulators, Asia scholars, students, and practitioners in the field of health-law and ethics, and end of life care. The book has wider application for scholars in law, ethics and healthcare.  Daisy Cheung is an Assistant Professor in the Department of Law and the Centre for Medical Ethics and Law at The University of Hong Kong. Dr Michael Dunn is an Associate Professor and the Co-Director of Education at the Centre for Biomedical Ethics in the Yong Loo Lin School of Medicine. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/new-books-network

Advance Directives in Asia: A Socio-Legal Analysis (Cambridge UP, 2023) , edited by Daisy Cheung and Michael Dunn is the first book to consider the concept of advance directives in Asia. It is unique in its depth and breadth as it brings together an extensive number of Asian jurisdictions to draw out the ways that advance directives are regulated in law and practice across the region. In their analysis Cheung and Dunn provide overall observations towards a concept of "generative accomodation". As a concept, generative accomodation has the potential to foreground new explorations of bioethics in Asia and globally. It also seeks to understand the role of the family in medical decision making. These are key concerns that come through in this comprehensive and groundbreaking book. It will be useful for regulators, Asia scholars, students, and practitioners in the field of health-law and ethics, and end of life care. The book has wider application for scholars in law, ethics and healthcare.  Daisy Cheung is an Assistant Professor in the Department of Law and the Centre for Medical Ethics and Law at The University of Hong Kong. Dr Michael Dunn is an Associate Professor and the Co-Director of Education at the Centre for Biomedical Ethics in the Yong Loo Lin School of Medicine. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/east-asian-studies

Advance Directives in Asia: A Socio-Legal Analysis (Cambridge UP, 2023) , edited by Daisy Cheung and Michael Dunn is the first book to consider the concept of advance directives in Asia. It is unique in its depth and breadth as it brings together an extensive number of Asian jurisdictions to draw out the ways that advance directives are regulated in law and practice across the region. In their analysis Cheung and Dunn provide overall observations towards a concept of "generative accomodation". As a concept, generative accomodation has the potential to foreground new explorations of bioethics in Asia and globally. It also seeks to understand the role of the family in medical decision making. These are key concerns that come through in this comprehensive and groundbreaking book. It will be useful for regulators, Asia scholars, students, and practitioners in the field of health-law and ethics, and end of life care. The book has wider application for scholars in law, ethics and healthcare.  Daisy Cheung is an Assistant Professor in the Department of Law and the Centre for Medical Ethics and Law at The University of Hong Kong. Dr Michael Dunn is an Associate Professor and the Co-Director of Education at the Centre for Biomedical Ethics in the Yong Loo Lin School of Medicine. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/medicine

Advance Directives in Asia: A Socio-Legal Analysis (Cambridge UP, 2023) , edited by Daisy Cheung and Michael Dunn is the first book to consider the concept of advance directives in Asia. It is unique in its depth and breadth as it brings together an extensive number of Asian jurisdictions to draw out the ways that advance directives are regulated in law and practice across the region. In their analysis Cheung and Dunn provide overall observations towards a concept of "generative accomodation". As a concept, generative accomodation has the potential to foreground new explorations of bioethics in Asia and globally. It also seeks to understand the role of the family in medical decision making. These are key concerns that come through in this comprehensive and groundbreaking book. It will be useful for regulators, Asia scholars, students, and practitioners in the field of health-law and ethics, and end of life care. The book has wider application for scholars in law, ethics and healthcare.  Daisy Cheung is an Assistant Professor in the Department of Law and the Centre for Medical Ethics and Law at The University of Hong Kong. Dr Michael Dunn is an Associate Professor and the Co-Director of Education at the Centre for Biomedical Ethics in the Yong Loo Lin School of Medicine. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/south-asian-studies

Advance Directives in Asia: A Socio-Legal Analysis (Cambridge UP, 2023) , edited by Daisy Cheung and Michael Dunn is the first book to consider the concept of advance directives in Asia. It is unique in its depth and breadth as it brings together an extensive number of Asian jurisdictions to draw out the ways that advance directives are regulated in law and practice across the region. In their analysis Cheung and Dunn provide overall observations towards a concept of "generative accomodation". As a concept, generative accomodation has the potential to foreground new explorations of bioethics in Asia and globally. It also seeks to understand the role of the family in medical decision making. These are key concerns that come through in this comprehensive and groundbreaking book. It will be useful for regulators, Asia scholars, students, and practitioners in the field of health-law and ethics, and end of life care. The book has wider application for scholars in law, ethics and healthcare.  Daisy Cheung is an Assistant Professor in the Department of Law and the Centre for Medical Ethics and Law at The University of Hong Kong. Dr Michael Dunn is an Associate Professor and the Co-Director of Education at the Centre for Biomedical Ethics in the Yong Loo Lin School of Medicine. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/law

Advance Directives in Asia: A Socio-Legal Analysis (Cambridge UP, 2023) , edited by Daisy Cheung and Michael Dunn is the first book to consider the concept of advance directives in Asia. It is unique in its depth and breadth as it brings together an extensive number of Asian jurisdictions to draw out the ways that advance directives are regulated in law and practice across the region. In their analysis Cheung and Dunn provide overall observations towards a concept of "generative accomodation". As a concept, generative accomodation has the potential to foreground new explorations of bioethics in Asia and globally. It also seeks to understand the role of the family in medical decision making. These are key concerns that come through in this comprehensive and groundbreaking book. It will be useful for regulators, Asia scholars, students, and practitioners in the field of health-law and ethics, and end of life care. The book has wider application for scholars in law, ethics and healthcare.  Daisy Cheung is an Assistant Professor in the Department of Law and the Centre for Medical Ethics and Law at The University of Hong Kong. Dr Michael Dunn is an Associate Professor and the Co-Director of Education at the Centre for Biomedical Ethics in the Yong Loo Lin School of Medicine. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK

Advance Directives in Asia: A Socio-Legal Analysis (Cambridge UP, 2023) , edited by Daisy Cheung and Michael Dunn is the first book to consider the concept of advance directives in Asia. It is unique in its depth and breadth as it brings together an extensive number of Asian jurisdictions to draw out the ways that advance directives are regulated in law and practice across the region. In their analysis Cheung and Dunn provide overall observations towards a concept of "generative accomodation". As a concept, generative accomodation has the potential to foreground new explorations of bioethics in Asia and globally. It also seeks to understand the role of the family in medical decision making. These are key concerns that come through in this comprehensive and groundbreaking book. It will be useful for regulators, Asia scholars, students, and practitioners in the field of health-law and ethics, and end of life care. The book has wider application for scholars in law, ethics and healthcare.  Daisy Cheung is an Assistant Professor in the Department of Law and the Centre for Medical Ethics and Law at The University of Hong Kong. Dr Michael Dunn is an Associate Professor and the Co-Director of Education at the Centre for Biomedical Ethics in the Yong Loo Lin School of Medicine. Jane Richards is a doctoral student at the University of Hong Kong. You can find her on twitter where she follows all things related to human rights and Hong Kong politics @JaneRichardsHK Learn more about your ad choices. Visit megaphone.fm/adchoices

How do we prepare now to die well? Can we reimagine care of the dying in all of its messiness as a gift? Dr. Lydia Dugdale, a medical ethicist, internal medicine doctor, professor, and author of The Lost Art of Dying, talks with Amy Julia Becker about:DisabilityDeathMedical assistance in dyingHonoring all human life as the gift it is without idolizing life__Guest Bio:“Lydia Dugdale MD, MAR, is the Dorothy L. and Daniel H. Silberberg Associate Professor of Medicine and Director of the Center for Clinical Medical Ethics at Columbia University. Prior to her 2019 move to Columbia, she was Associate Director of the Program for Biomedical Ethics and founding Co-Director of the Program for Medicine, Spirituality, and Religion at Yale School of Medicine. She is an internal medicine primary care doctor and medical ethicist. Her first book, Dying in the Twenty-First Century (MIT Press, 2015), provides the theoretical grounding for this current book. She lives with her husband and daughters in New York City.”__Connect Online:Website: lydiadugdale.com__On the Podcast:Book: The Lost Art of Dying: Reviving Forgotten Wisdom__Interview transcript and more: amyjuliabecker.com/lydia-dugdale__Season 6 of the Love Is Stronger Than Fear podcast connects to themes in my latest book, To Be Made Well, which you can order here! Learn more about my writing and speaking at amyjuliabecker.com.__*A transcript of this episode will be available within one business day on my website, and a video with closed captions will be available on my YouTube Channel.Connect with me: Instagram Facebook Twitter Website Thanks for listening!

In today's episode, Emily speaks with writer and philosophy professor Chloé Cooper Jones about her memoir Easy Beauty, which chronicles her quest to widen perceptions of beauty, motherhood, and disability. Find show notes, transcript, and more at thenocturnists.com.

Stand Up is a daily podcast. I book,host,edit, post and promote new episodes with brilliant guests every day. Please subscribe now for as little as 5$ and gain access to a community of over 740 awesome, curious, kind, funny, brilliant, generous souls. 15 minutes Dr Arthur Caplan who is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU School of Medicine in New York City. Prior to coming to NYU School of Medicine, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Caplan has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.  He received his PhD from Columbia University Follow Dr Caplan on Twitter and let him know you heard him here! 39 minutes  Maura Quint  is a humor writer and activist whose work has been featured in publications such as McSweeneys and The New Yorker. She was named one of Rolling Stone's top 25 funniest twitter accounts of 2016. When not writing comedy, Maura has worked extensively with non-profits in diverse sectors including political action campaigns, international arts collectives and health and human services organizations. She has never been officially paid to protest but did once find fifteen cents on the ground at an immigrants' rights rally and wanted to make sure that had been disclosed. She was the co founder and executive director of TaxMarch.org  Check out all things Jon Carroll Follow and Support Pete Coe Pete on YouTube Pete on Twitter Pete On Instagram Pete Personal FB page Stand Up with Pete FB page

Eli Merritt is a political historian, and an MD and psychiatrist. At Vanderbilt University, he's served as a professor and visiting scholar in three departments: History, Psychiatry & Behavioral Sciences and the Center for Biomedical Ethics and Society. He's written and/or edited a few books, including the newly released HOW TO SAVE DEMOCRACY: INSPIRATION AND ADVICE FROM 95 WORLD LEADERS. He's our guest today.Given his wealth of areas of expertise, I have lots of questions for him. Perhaps we will get the answer to the question of how to save democracy! And we'll share some listener mail too.. it's been a while!

Welcome to Episode 142 of Autism Parenting Secrets. Want to know what's behind your child's tantrums and meltdowns? Our guests this week have powerful insights to share!  Kate C. Wilde and Raun K. Kaufman are founders of the Autism Crisis Turnaround.They have been supporting parents like you for decades.No parent wants to see their child exhibit challenging behaviors.But they will occur and there's always a reason for it.The Secret This Week is…It's NOT A Tantrum, It's a NEUROCRASH You'll Discover:Why Symptom Suppressors Don't Work (7:25)The Real Underlying Problem (10:23)A Paradigm-Shifting Visualization (14:59)Examples of “Neurocrashes” (26:49)Why The Parent's Emotional State Matters So Much (36:28)A Case Study In Giving More Control (39:10)About Our Guests:https://www.autismcrisisturnaround.com/Kate C. Wilde - Co-creator of the ACT (Autism Crisis Turnaround) protocol, has spent the last 30 years working with children and adults on the autism spectrum and their families, as well as with therapists, educators, and schools. She is the author of the acclaimed books, Autistic Logistics: A Parent's Guide to Tackling Bedtime, Toilet Training, Tantrums, Hitting, and Other Everyday Challenges, The Autism Language Launcher: A Parent's Guide to Helping Your Child Turn Sounds and Words into Simple Conversations, and Autism Abracadabra: Seven Magic Ingredients to Help Develop Your Child's Interactive Attention Span. Renowned for the courses she teaches throughout the U.S., Europe, and Asia, Kate also speaks at worldwide online autism summits. She is a columnist for Exceptional Needs Today, and has written articles for such publications as Autism Parenting Magazine in the U.S. and SEN Magazine in the U.K. Kate has forever left her mark on the autism world by having, over the years, intensively trained and qualified more than forty professionals who have gone on to help thousands of families, children, and educators across the globe.Raun K Kaufman - An international lecturer and graduate of the Ivy League's Brown University with a degree in Biomedical Ethics, Raun K. Kaufman is the author of the book Autism Breakthrough and the co-creator of the ACT (Autism Crisis Turnaround) protocol, which pioneered the concept of the Neuro-Crash. The former CEO of an international autism training non-profit, Raun has spent more than 25 years developing innovative heart-led autism approaches built around a true understanding the autistic brain, nervous system, psyche, and experience and has worked with families and educators from over 100 different countries. As a child, he was diagnosed with so-called “severe” (non-speaking) autism and recommended for lifelong institutionalization. Instead, his parents worked with him in a totally new way they developed, enabling him to blossom, grow, and, ultimately, accomplish everything his parents were promised he would not. A best-selling book and award-winning television movie were made about his journey. He has been interviewed by media such as National Public Radio, BBC Television, Fox News Channel, The London Telegraph, and People Magazine and lectures throughout Europe, Asia, and the United States.References in The Episode:Episode 69 Your Child is NOT The ProblemEpisode 90 Meltdowns Are NOT InevitableEpisode 100 A More Engaged Child Starts With YouAdditional Resources:Take The Quiz: What's YOUR Top Autism Parenting Blindspot?To learn more about Cass & Len, visit us at www.autismparentingsecrets.comBe sure to follow Cass & Len on InstagramIf you enjoyed this episode, share it with your friends.

Kirk and Amelia continue our discussion of Epistemic Injustice with Ryan Felder, PhD. Ryan is a Clinical Ethics Fellow at the Stanford Center for Biomedical Ethics. He earned his PhD in philosophy from the City University of New York in 2021. He shares his thoughts on the practical applications of Epistemic Injustice in clinical ethics consultation as well as how Epistemic Injustice relates to our understandings of cannabis efficacy and long COVID among other things. Ryan's other work can be found here: https://onlinelibrary.wiley.com/doi/full/10.1002/hast.1248.

Hello There Listener Friend! Today's show recaps Monday's  news and welcomes Bio Ethicist Dr Arthur Caplan at 17 mins and Journalism Professor Jeff Jarvis at 42 mins Stand Up is a daily podcast that I book,host,edit, post and promote new episodes with brilliant guests every day. Please subscribe now for as little as 5$ and gain access to a community of over 740 awesome, curious, kind, funny, brilliant, generous souls Dr Arthur Caplan who is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU School of Medicine in New York City. Prior to coming to NYU School of Medicine, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Caplan has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.  He received his PhD from Columbia University Follow Dr Caplan on Twitter and let him know you heard him here!   Jeff Jarvis is the author of What Would Google Do?   and Public Parts: How Sharing in the Digital Age Improves the Way we Work and Live. He has blogged at Buzzmachine.com about media, technology, and life's irritations since 2001. Jarvis directs the Tow-Knight Center for Entrepreneurial Journalism at the City University of New York Graduate School of Journalism. He writes occasionally for the Guardian and HuffingtonPost. You can see and hear Jeff on "This Week In Google" In prior lives, Jarvis was creator and founding editor of Entertainment Weekly; president and creative director of Advance.net (online arm of Advance Publications); Sunday editor and associate publisher of the New York Daily News; a columnist on the San Francisco Examiner. Jeff's list experts https://twitter.com/i/lists/1237834151694303234 https://buzzmachine.com/ Check out all things Jon Carroll Follow and Support Pete Coe Pete on YouTube Pete on Twitter Pete On Instagram Pete Personal FB page Stand Up with Pete FB page

Whether you come from a corporate background or not, trying to secure corporate clients can feel intimidating. Corporate has a stuffy, stiff reputation that may not align with the way you want to do business.   Or maybe your brand is whimsy, fun, and loud. And that's not really what corporate looks like, does it?   But in reality, corporate is filled with human beings who all have their own personalities. So it's not surprising that something fun and outside the box might very well be what sets you apart from someone else…and exactly what gets you hired.   That's what this week's guest, Anniedi Essien, found when she and a friend started a YouTube channel during the pandemic. With only 10 followers, they secured a multi-year licensing deal and corporate contract from their channel.   It's all about the sparkle and swagger that you bring to the table, according to Anniedi. And I couldn't agree more. Be sure to listen in!   About Anniedi Essien:   Anniedi Essien is CEO and Founder at Idem Spark where she advises business leaders on building the workforce of the future by fusing cutting edge well-being and leadership development strategies. Anniedi delivers keynotes, workshops, consulting and executive coaching programs for diverse audiences. She loves teaching top performers how to slay their well-being and career goals with powerful insights as a former corporate health and wellness executive.   Anniedi is a trusted advisor to C-level and senior leaders and was a founding member of PwC's New Entrants and Innovators in Health consulting practice at Strategy&. She drove growth strategies, disruptive innovation, and employer driven wellness solutions for the top global brands, including Fortune 10 clients such as Walmart Health. Prior to PwC, Anniedi designed market expansion strategies for Medtronic, executed strategic partnerships for EmblemHealth, and managed corporate wellness programs for GE Energy. Her work on social determinants of health has been recognized by the American Association for World Health / World Health Organization.   With twenty years of health industry experience, workforce well-being expertise, and a people first mindset, Anniedi is passionate about human flourishing. She is a Co-Founder of Healthtech Women Charlotte, a non-profit dedicated to getting more women into the C-Suite. Anniedi co-created W.I.D.E. Dynamic Dialogues to build inclusive cultures that are more responsive to the emerging needs of a diverse workforce by optimizing employee well-being.   Anniedi holds an MBA in Strategy from NYU Stern School of Business and a BA in Biomedical Ethics from Brown University. She is a foodie, yoga lover and avid karaoke enthusiast.   Links and Resources: Swagger School Seal the Corporate Deal Join the Inner Circle Time Stamps: [2:58] - More about Anniedi [4:39] - Shifting to work/life harmony instead of outdated work/life balance [6:10] - The time we spend outside traditional health system has a big influence on our wellness [8:15] - Women and folks of color experiencing burnout more than others [9:08] - It's hard to recognize you've lost your sparkle if you're climbing the ladder [11:20] - When you're in that swagger, that's when things really start to open up; but it's scary to trust that [13:02] - The things we shy away from are the things we need to spotlight [18:28] - Being an accidental entrepreneur [20:23] - How she transitioned to get the sparkle back  [21:43] - What's your meaningful purpose? [32:45] - Your business shouldn't suck out your soul [33:08] - How do you go from soul sucking to soul singing [36:15] - Being authentic about hard parts make it so meaningful to others

Hello and welcome to Informatics in the Round,  a podcast designed to help everyone become a part of the dialog about topics in biomedical informatics.  I'm Kevin Johnson, a physician and informatics researcher at the University of Pennsylvania. @kbjohnsonmd on Twitter, www.kevinbjohnsonmd.net on the web!  The overturning of Roe v. Wade has had a significant impact on our country. What many may not realize is the impact it might have across all of the health care system as we know it, including the informatics community.  However, this episode will enlighten us all about this, and, unfortunately, will probably make a few people lose sleep. We are joined in this episode by Professor Bradley Malin, Accenture Professor of Biomedical Informatics, Biostatistics, and Computer Science, as well as Vice Chair for Research Affairs in the Department of Biomedical Informatics.  He is one of the world's experts on data privacy, having invented or helped to debunk myths around the most common approaches used to protect electronic medical records from use or to facilitate safe data sharing.  He is an elected fellow of the National Academy of Medicine (NAM), the American College of Medical Informatics (ACMI), the International Academy of Health Sciences Informatics (IAHSI), and the American Institute for Medical and Biological Engineering (AIMBE).  In addition, he was honored as a recipient of the Presidential Early Career Award for Scientists and Engineers (PECASE) from the White House. Brad is joined by Dr. Ellen Wright Clayton, JD, MD. Ellen is an internationally respected leader in the field of law and genomics who holds appointments in Pediatrics and in Health Policy at VUMC, and in the Law School as well as the Center for Biomedical Ethics and Society at Vanderbilt University. Ellen has helped to develop policy statements for numerous national and international organizations, including the Public Population Project in Genomics, Human Genome Organization, Council of International Organizations of Medical Sciences, the American Society of Human Genetics, and the American Academy of Pediatrics. Ellen has worked on a number of projects for the Institute of Medicine (now the National Academy of Medicine) and is currently a member of its National Advisory Council, director of its Board on Population Health and Public Health Practice, and the Report Review Committee. For her service, she received the David P. Rall Medal from the IOM in 2013.   In addition to these amazing guests, we're excited to have ST Bland, a leader in Vanderbilt's Center for Precision Medicine here, as well as Jane Bach, an extremely successful “performing” songwriter in Nashville. Jane is joined again by Jeanie McQuinn of http://www.greatbigrivermusic.com, a partner with Jane in songwriting.   

Dr. Caplan is currently the Drs. William F. and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU Grossman School of Medicine in New York City. Prior to coming to NYU, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. He has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics; the University of Pittsburgh; and Columbia University. He received his PhD from Columbia University. Dr. Caplan is the author or editor of 35 books and more than 800 papers in peer reviewed journals. His most recent books are Vaccination Ethics and Policy (MIT Press, 2017, with Jason Schwartz) and Getting to Good: Research Integrity in Biomedicine (Springer, 2018, with Barbara Redman). He has served on a number of national and international committees including as chair of the National Cancer Institute Biobanking Ethics Working Group; chair of the Advisory Committee to the United Nations on Human Cloning; and chair of the Advisory Committee to the Department of Health and Human Services on Blood Safety and Availability. He has also served on the Presidential Advisory Committee on Gulf War Illnesses; the Special Advisory Committee to the International Olympic Committee on Genetics and Gene Therapy; the Special Advisory Panel to the National Institutes of Mental Health on Human Experimentation on Vulnerable Subjects; the Wellcome Trust Advisory Panel on Research in Humanitarian Crises; and as the co-director of the Joint Council of Europe/United Nations Study on Trafficking in Organs and Body Parts. Dr. Caplan has served since 2015 as a chair of the Compassionate Use Advisory Committees (CompAC), independent groups of internationally recognized medical experts, bioethicists, and patient representatives that advise Johnson & Johnson's Janssen Pharmaceuticals on requests for compassionate use of its investigational medicines. Dr. Caplan is a regular commentator on bioethics and health care issues for WebMD/Medscape, WGBH radio in Boston, WOR radio in New York City, and CNN. He appears frequently as a guest and commentator on various other national and international media outlets. Dr. Caplan is the recipient of many awards and honors including the McGovern Medal of the American Medical Writers Association and the Franklin Award from the City of Philadelphia. He was a USA Today 2001 “Person of the Year” and was described as one of the ten most influential people in science by Discover magazine in 2008. He has also been honored as one of the fifty most influential people in American health care by Modern Health Care magazine, one of the ten most influential people in America in biotechnology by the National Journal, one of the ten most influential people in the ethics of biotechnology by the editors of Nature Biotechnology, and one of the 100 most influential people in biotechnology by Scientific American magazine. During the COVID-19 pandemic, he is co-directing an advisory group on sports and recreation for the U.S. Conference of Mayors, created a working group on coronavirus vaccine challenge studies, developed an ethical framework for distributing drugs and vaccines for J&J, and helped develop rationing policies for NYU Langone Health and many other health systems. He is a member of the WHO advisory committee on COVID-19, ethics, and experimental drugs/vaccines, and he helped set policy for WIRB/WCG for research studies. He was an adviser to Moderna, Inc., and he serves on the NCAA COVID-19 Medical Advisory Group. Dr. Caplan received the Patricia Price Browne Prize in Biomedical Ethics for 2011. In 2014, he was selected to receive the Public Service Award from the National Science Foundation/National Science Board, which honors individuals and groups that have made substantial contributions to increasing public understanding of science and engineering in the United States. In 2016, the National Organization for Rare Disorders (NORD) honored him with its Rare Impact Award; that year he also received the Food and Drug Law Institute's Distinguished Service Leadership Award and the American Society for Bioethics and Humanities' Lifetime Achievement Award. In 2019, he was honored by the Reagan-Udall Foundation for the FDA with its Innovation Award. Dr. Caplan's faculty page: https://med.nyu.edu/faculty/arthur-l-caplan Dr. Caplan holds seven honorary degrees from colleges and medical schools. Dr. Caplan's electronic long-form (ELF) disclosure statement can be found here: https://bit.ly/3ilyprJ Dr. Caplan's twitter address: https://twitter.com/arthurcaplan?s=21&t=RLCoVC9ZUsFtn5g_mllyxw COI disclosures. https://bit.ly/3eixl7l Working Group on Compassionate Use and Preapproval Access (CUPA) https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/medical-ethics/research/working-group-compassionate-use-preapproval-access Vaccine Working Group on Ethics and Policy http://vaccineworkinggroupethics.org/ Working Group on Pediatric Gene Therapy & Medical Ethics https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/medical-ethics/research/working-group-pediatric-gene-therapy-medical-ethics Transplant Ethics and Policy https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/medical-ethics/research/transplant-ethics-policy  

In this episode, Joseph Clair talks with Dr. Lydia Dugdale about shifts in cultural perception of the end of life. They discuss the immense medical advances and major historical events of the last century that have profoundly affected people's attitude toward death. Does Christian belief in life after death alleviate the fear of it? In a culture that keeps death at a distance, what practices can help us to number our days?Lydia Dugdale, MD, MAR (ethics), is the Dorothy L. and Daniel H. Silberberg Associate Professor of Medicine at Columbia University Vagelos College of Physicians and Surgeons and Director of the Center for Clinical Medical Ethics. She also serves as Associate Director of Clinical Ethics at NewYork-Presbyterian Hospital/Columbia University Irving Medical Center. A practicing internist, Dugdale moved to Columbia in 2019 from Yale University, where she previously served as Associate Director of the Program for Biomedical Ethics. Her scholarship focuses on end-of-life issues, medical ethics, and the doctor-patient relationship. She edited Dying in the Twenty-First Century (MIT Press, 2015) and is author of The Lost Art of Dying (HarperOne, 2020), a popular press book on the preparation for death.Our host, Joseph Clair, serves as the executive dean of the Cultural Enterprise at George Fox University, which encompasses the humanities, theology, education, and professional studies. He is also an associate professor of theology and culture. Before joining the George Fox faculty in 2013, he earned his PhD in the religion, ethics and politics program at Princeton University while also working as an assistant in instruction. Prior to Princeton, Clair earned an MPhil at the University of Cambridge as a Gates Cambridge Scholar. He also holds master's degrees from Fordham and Duke University, as well as a bachelor's degree from Wheaton College.These podcasts are also all video recorded and on our YouTube channel! You can also visit our website at https://georgefox.edu/talks for more content like this.

What is the difference between coaching and consulting? Drew Long is the most recent addition to the Hawthorne Union. While he has his background and experience in coaching, he came on the show to talk about how he's contributed to others by consulting and mentoring several other business ventures. Drew holds a Bachelor of Science in Business Administration with a certificate in Biomedical Ethics and has worked and coached in the Sales, Sales Leadership, Finance, Renewable Energy, Education, and Digital Marketing spaces. Drew is currently pursuing his Professional Certified Coach credential through the International Coaching Federation. In this episode we referenced: · Drew referenced the phenomenon of psychological reactance, the aversion we have to people telling us what to do. · Using this as a sales or leadership technique is covered in the book Instant Influence by Michael Pantalon (affiliate link) · Marcus Buckingham's (of Strengthfinders and "First, Break All the Rules." fame) new book is called Love and Work. (affiliate link) · Thomas Delauer is a fitness and nutrition coach, and influencer on YouTube. --- I'm Jacen from Hawthorne Union, a professional coach. Join me as I discuss career development, personal and professional growth, and leadership from a coach's point of view. Contact: jacen@hawthorneunion.com

What happens when miscommunication between a doctor and patient leads to intractable conflict? What happens when a patient requests an intervention a doctor does not feel ethically comfortable with? In the toughest of situations, doctors turn to the clinical ethicist for help. Dr. David Magnus, an internationally regarded leader in clinical ethics, is the director of the Stanford University Center for Biomedical Ethics, co-founder and editor-in-chief of the American Journal of Bioethics, and former president of the Association of Bioethics Program Directors. In this episode, Dr. Magnus shares lessons learned from the most ethically ambiguous scenarios he has managed, the importance of ethical thinking skills for all clinicians, and the difficulties inherent in clinician-patient communication.In this episode, you will hear about:What it's like to be a clinical ethicist, handling the tough ethical questions doctors call on them to resolve - 5:05How an ethicist determines what is “right” in a given circumstance - 9:10How Dr. Magnus' deals with patients who refuse to accept his recommendations for care - 11:33Dr. Magnus's journey from professor of philosophy to leading thinker on medical ethics - 14:00How the intense specialization of modern medicine may be contributing to clinician burnout - 23:31How misinterpretation of language can be a major barrier to good health care - 32:25Why clinicians use “hedge language” and “shield attributions” and how they can dramatically alter a patient's understanding of their situation - 40:46Dr. Magnus's advice to new clinicians on cultivating skills in ethical thinking and responsible patient communication - 50:45Learn more about the American Society for Bioethics and Humanities here.Visit our website www.TheDoctorsArt.com where you can find transcripts of all episodes.If you enjoyed this episode, please subscribe, rate, and review our show, available for free on Spotify, Apple Podcasts, or wherever you get your podcasts. If you know of a doctor, patient, or anyone working in health care who would love to explore meaning in medicine with us on the show, feel free to leave a suggestion in the comments or send an email to info@thedoctorsart.com.Copyright The Doctor's Art Podcast 2022

We are now at a point when anything pharma wants will be foisted upon you with no legal or medical norms to ensure safety. On the other hand, doctors are being investigated for treating patients rather than letting them die. Meanwhile, pharmacists can now “prescribe” Pfizer's dangerous drug. Today, we're joined by Dr. Mary Talley Bowden, a Texas-based ENT specialist who has successfully treated over 4,000 COVID patients. Most of them are vaccinated. Also, 10%-15% of her practice are vaccine-injured patients. What is her reward for treating the people the other doctors ignore? She is under investigation by the Texas Medical Board. Learn more about your ad choices. Visit megaphone.fm/adchoices

Stand Up is a daily podcast. I book,host,edit, post and promote new episodes with brilliant guests every day. Please subscribe now for as little as 5$ and gain access to a community of over 800 awesome, curious, kind, funny, brilliant, generous souls Check out StandUpwithPete.com to learn more David Rothkopf is the CEO of The Rothkopf Group, host of the Deep State Radio podcast, and the author, most recently of “Traitor: A History of Betraying America from Benedict Arnold to Donald Trump.” The Rothkopf Group produces podcasts including Deep State Radio, National Security Magazine, custom programming for clients and it organizes live interactive web-based and live forums. Rothkopf is a contributing columnist to The Daily Beast and a member of the Board of Contributors of USA Today.  He is the author of hundreds articles on international, national security and political themes for publications that include the New York Times, Washington Post, USA Today, the Financial Times, the Daily Beast, Foreign Policy and Foreign Affairs. He is also a regular commentator on broadcast media worldwide. His previous books include Great Questions of Tomorrow, National Insecurity: American Leadership in an Age of Fear, Power, Inc.: The Epic Rivalry Between Big Business and Government—and the Reckoning That Lies Ahead , Superclass: The Global Power Elite and the World They Are Making, and Running the World: The Inside Story of the National Security Council and the Architects of American Power. His most recent book is The Great Questions of Tomorrow. Rothkopf has taught international affairs at Columbia University, Georgetown University and Johns Hopkins University. He has served as a member of a number of boards and advisory boards including those associated with the U.S. Institute of Peace, IREX, the Bloomberg School of Public Health at Johns Hopkins University, the Progressive Policy Institute, and the Center for the Study of the Presidency. Previously, Rothkopf served as CEO and Editor of the FP Group, publishers of Foreign Policy Magazine, CEO of Garten Rothkopf and was the founder and CEO of Intellibridge Corporation, an open source intelligence provider to government and private sector organizations. Prior to that he served as managing director of Kissinger Associates. Rothkopf served as deputy undersecretary of commerce for international trade policy in the Clinton administration and played a central role in developing the administration's groundbreaking Big Emerging Markets Initiative. Before government, Rothkopf was founder and CEO of International Media Partners and editor and publisher of the CEO Magazine and Emerging Markets newspaper. He also served as chairman of the CEO Institute. He is a graduate of Columbia College of Columbia University and attended the Columbia Graduate School of Journalism. Dr Arthur Caplan who is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU School of Medicine in New York City. Prior to coming to NYU School of Medicine, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Caplan has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.  He received his PhD from Columbia University Follow Dr Caplan on Twitter and let him know you heard him here! Check out all things Jon Carroll Follow and Support Pete Coe   Pete on YouTube Pete on Twitter Pete On Instagram Pete Personal FB page

No one wants to talk about death. Hell, most physicians don't want to cover the topic.No one wants to talk about death. Hell, most physicians don't want to cover the topic. But today's episode is all about just that, the art of dying.But don't think of this as a complete downer episode.  It's all part of our life journey.Today's guest is an expert in the art of human death. Lydia Dugdale MD, MAR, is the Dorothy L. and Daniel H. Silberberg Associate Professor of Medicine and Director of the Center for Clinical Medical Ethics at Columbia University. Prior to her 2019 move to Columbia, she was Associate Director of the Program for Biomedical Ethics and founding Co-Director of the Program for Medicine, Spirituality, and Religion at Yale School of Medicine. She is an internal medicine primary care doctor and medical ethicist. Her first book, Dying in the Twenty-First Century, provides the theoretical grounding for this current book, The Lost Art Of Dying. In it, Dr. Dugdale offers a hopeful perspective on death and dying as she shows us how to adapt the wisdom from the past to our lives today. The Lost Art of Dying is a vital, affecting book that reconsiders death, death culture, and how we can transform how we live each day, including our last.

No one wants to talk about death. Hell, most physicians don't want to cover the topic. But today's episode is all about just that, the art of dying.But don't think of this as a complete downer episode.  It's all part of our life journey.Today's guest is an expert in the art of human death. Lydia Dugdale MD, MAR, is the Dorothy L. and Daniel H. Silberberg Associate Professor of Medicine and Director of the Center for Clinical Medical Ethics at Columbia University. Prior to her 2019 move to Columbia, she was Associate Director of the Program for Biomedical Ethics and founding Co-Director of the Program for Medicine, Spirituality, and Religion at Yale School of Medicine. She is an internal medicine primary care doctor and medical ethicist. Her first book, Dying in the Twenty-First Century, provides the theoretical grounding for this current book, The Lost Art Of Dying. In it, Dr. Dugdale offers a hopeful perspective on death and dying as she shows us how to adapt the wisdom from the past to our lives today. The Lost Art of Dying is a vital, affecting book that reconsiders death, death culture, and how we can transform how we live each day, including our last.

Stand Up is a daily podcast. I book,host,edit, post and promote new episodes with brilliant guests every day. Please subscribe now for as little as 5$ and gain access to a community of over 800 awesome, curious, kind, funny, brilliant, generous souls Check out StandUpwithPete.com to learn more 37 mins  Dr Arthur Caplan who is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Medical Ethics at NYU School of Medicine in New York City. Prior to coming to NYU School of Medicine, Dr. Caplan was the Sidney D. Caplan Professor of Bioethics at the University of Pennsylvania Perelman School of Medicine in Philadelphia, where he created the Center for Bioethics and the Department of Medical Ethics. Caplan has also taught at the University of Minnesota, where he founded the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.  He received his PhD from Columbia University Follow Dr Caplan on Twitter and let him know you heard him here!  1:05 I welcome the great Maura Quint. Maura is a humor writer and activist whose work has been featured in publications such as McSweeneys and The New Yorker. She was named one of Rolling Stone's top 25 funniest twitter accounts of 2016. When not writing comedy, Maura has worked extensively with non-profits in diverse sectors including political action campaigns, international arts collectives and health and human services organizations. She has never been officially paid to protest but did once find fifteen cents on the ground at an immigrants' rights rally and wanted to make sure that had been disclosed. She was the co founder and executive director of TaxMarch.org  And she recently began a new gig at the Americans for Tax Fairness campaign director Listen to Maura co host their new podcast revisiting the YA books we loved in the 80s & 90s "My So Called Book Club" Support Maura and Megan on Patreon!  Check out all things Jon Carroll Follow and Support Pete Coe   Pete on YouTube Pete on Twitter Pete On Instagram Pete Personal FB page

ABOUT THE IMPORTANT THINGSThe Important Things with Bobbi Brown and Anjali Kumar is a podcast that asks the question: how can you lead a life of fulfillment? The ongoing pandemic has given us all the opportunity to examine what really matters most to us and what brings us true contentment. Each week through candid conversations with friends, thought leaders, creators, and entrepreneurs (including Jennifer Fisher, Gloria Steinem, Jeopardy Champion Amy Schneider, Soccer Legends Ali Krieger and Ashlyn Harris, Charity Founder Christy Turlington Burns) Bobbi and Anjali uncover ways we can all learn to live more authentic, gratifying lives. Not the usual platitudes and advice, but the TRULY important stuff; the learnings and habits that anyone can take along for the ride.Episodes here:https://www.iheart.com/podcast/1119-the-important-things-with-92746733/The Important Things with Bobbi Brown and Anjali Kumar is a podcast that asks the question: how can you lead a life of fulfillment? The ongoing pandemic has given us all the opportunity to examine what really matters most to us and what brings us true contentment. Each week through candid conversations with friends, thought leaders, creators, and entrepreneurs, Bobbi and Anjali are looking for ...www.iheart.comBOBBI BROWN BIOEven as a young girl, Bobbi Brown was enthralled by makeup. "I remember watching my mother apply her white eye shadow and black liner in her blue gilded bathroom--she was glamorous, but fresh-looking." And as soon as she was able to work, Bobbi raced to the small cosmetics store in town, where she got her first taste of formal training.Bobbi's education continued at Boston's Emerson College, where she earned a B.F.A. in theatrical makeup. Upon graduation, she moved to New York City to make it as a professional makeup artist. She showed her ever-growing portfolio to anyone who would look at it, slowly built up contacts and experienced the challenges typical of most freelance makeup artists trying to make it in Manhattan. But despite the ups and downs, her talent and drive earned her coveted gigs with top magazines, photographers and models. Bobbi began her collaboration with photographers Bruce Weber and Arthur Elgort for American Vogue, as well as with the late Francesco Scavullo for Cosmopolitan and Self. A seven-page spread of full-face beauty shots of supermodel Tatiana Patitz--shot by Wayne Maser--also put Bobbi's work front and center.Bobbi's big breakthrough was her first American Vogue cover. The image was shot by famed photographer Patrick Demarchelier and featured the soon-to-be-supermodel Naomi Campbell, made up by Bobbi Brown. Seven years after arriving to New York City knowing no one, Bobbi was part of the club. The industry took notice.As a successful makeup artist with access to everything in the market, Bobbi found nearly all products looked too artificial, making it impossible to create a gorgeous, no-makeup look.Ten years into her freelance career, a chance meeting with a chemist at a magazine photo shoot changed everything. "I had the idea to create a lipstick that didn't smell, wasn't dry or greasy and looked like lips, only better--and I told the chemist about it," she says.The chemist made the lipstick following Bobbi's unprecedented specifications and the result was Brown Lip Color, a pinky-brown shade. Nine other brown-based lipstick shades followed soon after, and Bobbi's set of lipsticks was complete.In 1991, her 10 lipsticks debuted at the Bergdorf Goodman under the name of Bobbi Brown essentials. Bobbi was expecting to sell 100 in a month. She sold 100 within the first day.The message was clear: women wanted makeup that was simple, flattering and wearable. Word spread quickly. Bobbi's unique approach to cosmetics was a long-awaited gift for women who wanted a more natural look. The magazine industry's most prominent beauty editors got behind Bobbi, and her small, insider brand garnered big time buzz.The range expanded beyond lipstick. Bobbi's foundations were yellow-based, not pink, revolutionizing face makeup as it's known today. And, before long, she showed that she was as adept at neutrals as she was at bright and bold colors.This sea change in the beauty market caught the attention of cosmetics empire Estee Lauder, who bought Bobbi Brown Cosmetics in 1995, just four years after the company's inception. Today, Bobbi Brown retains creative control of the brand.In addition to running her company, Bobbi continues to pursue her craft by creating the runway looks for New York Fashion Week. A permanent fixture backstage, she works with the industry's best designers including Rachel Roy, J. Mendel, Erin Fetherston, Tory Burch and Cynthia Rowley.Bobbi often does how-to segments on The Today Show and The Oprah Winfrey Show, and her advice can be found in syndicated columns and advice features for magazines and websites around the globe.Of course, you can always find Bobbi where she began--on the set. Bobbi is still the world's most celebrated makeup artists for personalities and fashion magazines.A New York Times best-selling author, Bobbi has written several instructional and engaging beauty and lifestyle books, including: Bobbi Brown Beauty, Bobbi Brown Teenage Beauty, Bobbi Brown Beauty Evolution, Bobbi Brown Living Beauty and Bobbi Brown Makeup Manual.For Bobbi, making other people's lives better simply makes sense. "I love helping others because it feels good," she says. On a year-round basis, Bobbi Brown Cosmetics donates generous financial and in-kind support to organizations including Dress for Success and the Jane Addams Vocational High School. To learn more about Bobbi's philanthropic work, please visit Bobbi's Causes.ANJALI KUMAR BIOAnjali Kumar works with entrepreneurs and C-level executives in all stages of business, focusing on early-stage tech, consumer products, and luxury fashion companies with a social conscience.Anjali recently founded Slightly Reserved, a home for all of Anjali's entrepreneurial and creative ventures, including an advisory firm providing legal counsel and business strategy for entrepreneurs, executives, talent, and brands. She is also a co-founder of COVID Tech Connect which sent nearly 20,000 smart devices to hospitals and senior care facilities across the US that allow critically ill patients to connect with their loved ones.Prior to that, Anjali was the Founding Chief People Officer and General Counsel at Cheddar, the Founding Head of Social Innovation and Founding General Counsel at Warby Parker, Founding General Counsel at Acumen, and Senior Counsel at Google.While at Google, Anjali curated and hosted the @Google Speaker Series on the NYC campus, bringing Googlers from around the globe face-to-face with today's most prominent and innovative thought leaders including Anthony Bourdain, Questlove, and Jacques Pépin and hosted a YouTube interview series "Lunchtime at Google."Anjali's 2017 TED Talk based on her book Stalking God: My Unorthodox Search For Something To Believe In (Hachette 2018), has been watched by 5 million people around the world and translated into over twenty languages. A television show based on her book is in development.Anjali earned her BA in Biomedical Ethics from Brown University and a JD from Boston University School of Law. She is an Adjunct Professor at Columbia Business School and Fordham University and continues to advise non-profit organizations including Malala Fund and IDEO.org.In 2016, she was appointed by Mayor Bill de Blasio to join the NYC Children's Cabinet Advisory Board and the board of directors of GrowNYC. Anjali currently serves on the board of directors of Happy Money, IFundWomen, Women's World Banking, Amplifier, POV, and GloScience Professional.Anjali lives in New York City and upstate New York with her husband and daughter.

Welcome to Episode 90 of the Autism Parenting Secrets. Meltdowns!  That's the topic this week.  It's a challenge like no other.  This episode dives deep into what a parent CAN do about their child's meltdowns.  And the good news is… parents can do a lot.Our guests this week are Kate C. Wilde and Raun K. Kaufman. Collectively, they have over 50 years of experience supporting parents and their children on the autism spectrum.  They're authors, teachers and thought leaders with powerful insights.They've partnered to create the Autism Crisis Turnaround (ACT) Protocol, a three-step process that helps parents better address challenging situations like meltdowns.Tantrums and meltdowns are not uncommon, but they're likely much more prevalent with children on the spectrum.  And it can feel like they're just a part of Autism - that they come with the diagnosis.But that's NOT true.The secret this week is... Meltdowns are NOT Inevitable You'll Discover:Meltdowns DON'T Come With Autism (4:55)Meltdowns Are NOT Intentional (11:25)The 3 Core Issues Behind Your Child's Meltdowns (14:37)How To Reclaim Your Power DURING A Meltdown (20:07)Why Setting Boundaries Benefits YOU The Most (29:00)The Perspective Shift That's Needed (41:50) About Our Guests: Raun K. KaufmanRaun K. Kaufman is the author of the book, Autism Breakthrough: The Groundbreaking Method That Has Helped Families All Over the World and the former CEO of the Autism Treatment Center of America®. An international lecturer and graduate of the Ivy League's Brown University with a degree in Biomedical Ethics, Raun has completed lecture tours in the U.S., United Kingdom, Ireland, the Netherlands, Belgium, Sweden, Norway, Spain, Portugal, Poland, Romania, France, Japan, Singapore, the Philippines, Malaysia, and Vietnam.He has been interviewed by media such as National Public Radio, BBC Television, Fox News Channel, The London Telegraph, and People Magazine.In addition to his work with families and educators for almost 25 years, Raun brings a distinctive qualification to the realm of autism treatment: his own personal history. As a child, Raun was diagnosed with severe autism and recommended for lifelong institutionalization. Instead, his parents developed The Son-Rise Program®, which enabled Raun to emerge with no trace of his former diagnosis. His story was recounted in the best-selling book, Son-Rise: The Miracle Continues, and the award-winning NBC-TV movie, Son-Rise: A Miracle of Love.Kate C. WildeKate C. Wilde has spent the last 30 years working with children and adults on the autism spectrum and their families, as well as with therapists, educators, and schools. She is the author of the acclaimed books, Autistic Logistics: A Parent's Guide to Tackling Bedtime, Toilet Training, Tantrums, Hitting, and Other Everyday Challenges and The Autism Language Launcher: A Parent's Guide to Helping Your Child Turn Sounds and Words Into Simple Conversations.Kate teaches throughout the U.S., Europe and Asia, she has also spoken at worldwide online autism summits, including the Autism Hope Summit and the Autism Recovery Tele-Summit. She is a columnist for Exceptional Needs Today, has written articles for such publications as Autism Parenting Magazine in the U.S. and SEN Magazine in the U.K. She has intensively trained and qualified more than forty professionals at the Autism Treatment Center of America® who have gone on to use The Son-Rise Program® to help thousands of families, children, and educators across the globe.  References in This Episode:The ACT ProtocolAutism Parenting Secrets - Episode 69 - Your Child Is NOT The ProblemAutism Breakthrough by Raun K. KaufmanAutistic Logistics: A Parent's Guide to Tackling Bedtime, Toilet Training, Tantrums, Hitting, and Other Everyday Challenges by Kate C. WildeThe Autism Language Launcher: A Parent's Guide to Helping Your Child Turn Sounds and Words Into Simple Conversations by Kate C. WildeAdditional Resources:Free Resource: 33 Mistakes Most Autism Parents Make and How To Avoid ThemTo learn more about Cass & Len's All-In Warrior Parent Tribe, click hereGot a Picky Eater? - this can helpTo learn more about Cass & Len, visit us at www.autismparentingsecrets.comBe sure to follow Cass & Len on InstagramIf you enjoyed this episode, share it with your friends.Don't forget to subscribe to the show on Apple Podcasts to get automatic episode updates for our "Autism Parenting Secrets!"And, finally, please take a minute to leave us an honest review and rating on Apple Podcasts. They really help us out when it comes to the ranking of the show and we read every single one of the reviews we get. Thanks for listening! 

Dr. Lydia Dugdale joins Aaron to discuss her book—The Lost Art of Dying—and the place of death and dying in our culture. Dr. Lydia Dugdale, MD is a New York City internal medicine primary care doctor and medical ethicist. She is Associate Professor of Medicine and Director of the Center for Clinical Medical Ethics at Columbia University. Prior to her 2019 move to Columbia, she was the Associate Director of the Program for Biomedical Ethics and founding Co-Director of the Program for Medicine, Spirituality, and Religion at Yale School of Medicine. In addition to her book, she edited Dying in the Twenty-First Century, a volume that articulates a bioethical framework for a contemporary art of dying. The Lost Art of Dying: Reviving Forgotten Wisdom Please visit the Ethics and Public Policy's Bioethics and American Democracy program page for more information.