Podcasts about disability visibility project

Writer and disability justice activist Alice Wong's illness took her ability to speak without technological assistance, but she continues to make herself, and members of her community, profoundly heard. As part of our new series profiling legends of the Bay Area, Wong joins us to talk about her joyous approach to life and her recent MacArthur Genius win, and to share some favorite interviews recorded with StoryCorps as part of her Disability Visibility Project. We also check in with fellow disability rights activists about the evolution of the movement and the importance of being heard. Guests: Alice Wong, disabled activist, writer and community organizer; founder, Disability Invisibility Project; author, "Year of the Tiger: An Activist's Life." Yomi Sachiko Young, Oakland-based social justice organizer, disability justice dreamer Sandy Ho, executive director of the Disability and Philanthropy Forum Emily Flores, journalist and founder/editor in chief, Cripple Media

The 100th episode(!) of Page Fright, in which Andrew hosts a live reading featuring four poets (Estlin McPhee, Kyle McKillop, Jane Shi, and Rob Taylor) at Massy Arts Society to celebrate 5 years and 100 episodes of poetry interviews! The poets share their writing with the audience, and Andrew gets overwhelmed! -- Estlin McPhee is a writer and librarian who lives on the traditional territories of the Musqueam, Squamish, and Tsleil-Waututh peoples. Estlin holds an MFA in Creative Writing from the University of British Columbia and is the author of the poetry chapbook Shapeshifters (Rahila's Ghost Press, 2018). Their writing has appeared in journals across North America; for many years, they co-organized REVERB, a queer reading series in Vancouver. Estlin's debut poetry collection In Your Nature is forthcoming in spring 2025 with Brick Books. Kyle McKillop is a poet and teacher who completed his MFA in creative writing at UBC. His poems have appeared in CV2, tuesday poem, English Practice, the Sustenance anthology of BC food writing, and a couple of chapbooks, among others. He is a past president of the BC Teachers of English Language Arts, the Surrey English Teachers' Association, and the Royal City Literary Arts Society, and he lives on the traditional and unceded territory of the Katzie, Kwantlen, Stó:lō, and other Coast Salish nations. Jane Shi lives on the occupied and stolen territories of the xʷməθkʷəýəm (Musqueam), Sḵwx̱wú7mesh (Squamish), and səlilwətaɬ (Tsleil-Waututh) nations. Her writing has appeared in the Disability Visibility Project blog, Briarpatch Magazine, and The Offing, among others. She is the winner of The Capilano Review's 2022 In(ter)ventions in the Archive Contest and author of the chapbook Leaving Chang'e on Read (Rahila's Ghost Press, 2022). Her debut poetry collection echolalia echolalia is out now with Brick Books. She wants to live in a world where love is not a limited resource, land is not mined, hearts are not filched, and bodies are not violated. Rob Taylor is the author of five poetry collections, including Strangers and The News, which was a finalist for the Dorothy Livesay Poetry Prize. His new collection, Weather, was published in May from Gaspereau Press. Rob is also the editor of What the Poets Are Doing: Canadian Poets in Conversation and Best Canadian Poetry 2019. He teaches creative writing at the University of the Fraser Valley, and lives with his family in Port Moody, BC, on the unceded territories of the kʷikʷəƛ̓əm (Kwikwetlem) and səlilwətaɬ (Tsleil-Waututh) peoples. -- Andrew French is a poet from North Vancouver, British Columbia. They have published three chapbooks, most recently Buoyhood (forthcoming with Alfred Gustav Press, 2025). Andrew holds a BA in English from Huron University College at Western University and an MA in English from UBC. They write poems, book reviews, and have hosted this very podcast since 2019.

Some podcast apps may not display links from our show notes properly, so we have included a list of links at the end of this description. * Alice Wong is an acclaimed disabled activist whose work and writing has shaped the modern conversation around disability. As the founder and director of the Disability Visibility Project, her work foregrounds the stories of those living with disabilities and paints a vibrant picture of disability media and culture. In her latest book, Disability Intimacy, Alice uses her distinctive voice to highlight and curate stories of intimacy. More than sex, more than romantic love, the pieces in her stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. * In this episode, Alice is joined in a conversation with writer, educator and trainer for transformative justice and disability justice Mia Mingus. Their conversation about Alice's life and work will free your thinking, invigorate your spirit, and delight your desires. * This episode was recorded during a live online event on June 18th, 2024. You can also watch it on the CIIS Public Programs YouTube channel. A transcript is available at ciispod.com. To find out more about CIIS and public programs like this one, visit our website ciis.edu and connect with us on social media @ciispubprograms. * We hope that each episode of our podcast provides opportunities for growth, and that our listeners will use them as a starting point for further introspection. Many of the topics discussed on our podcast have the potential to bring up feelings and emotional responses. If you or someone you know is in need of mental health care and support, here are some resources to find immediate help and future healing: * -Visit 988lifeline.org or text, call, or chat with The National Suicide Prevention Lifeline by dialing 988 from anywhere in the U.S. to be connected immediately with a trained counselor. Please note that 988 staff are required to take all action necessary to secure the safety of a caller and initiate emergency response with or without the caller's consent if they are unwilling or unable to take action on their own behalf. * -Visit thrivelifeline.org or text “THRIVE” to begin a conversation with a THRIVE Lifeline crisis responder 24/7/365, from anywhere: +1.313.662.8209. This confidential text line is available for individuals 18+ and is staffed by people in STEMM with marginalized identities. * -Visit translifeline.org or call (877) 565-8860 in the U.S. or (877) 330-6366 in Canada to learn more and contact Trans Lifeline, who provides trans peer support divested from police. * -Visit ciis.edu/ciis-in-the-world/counseling-clinics to learn more and schedule counseling sessions at one of our centers. * -Find information about additional global helplines at befrienders.org. * LINKS * Podcast Transcripts: https://www.ciispod.com/ * California Institute of Integral Studies (CIIS) Website: https://www.ciis.edu/ * CIIS Public Programs YouTube Channel: https://www.youtube.com/c/ciispublicprograms * CIIS Public Programs Instagram: https://www.instagram.com/ciispubprograms/ * Mental Health Care and Support Resources: https://988lifeline.org/ https://thrivelifeline.org/ https://translifeline.org/ https://www.ciis.edu/ciis-in-the-world/counseling-clinics https://befrienders.org/

“Intimacy is about relationships within a person's self, with others, with communities, with nature, and beyond,” writes Alice Wong, founder and director of the Disability Visibility Project and editor of the new anthology, “Disability Intimacy.” When Wong began work on the book, she googled what would become its title — and what was she found was “basic AF” and made her go “Ewwwwww.” That inspired her to commission and collect writing from people with disabilities about what intimacy meant to them. The essays reflect on friendships, parent-child bonds, romantic relationships and disability communities. We'll hear from Wong and some of the anthology's contributors about the intimacy of sharing and disclosing our relationships with ourselves, with others and with disability itself. And we'll hear their stories of “love, care and desire” — and the personal and systemic change that intimacy can bring. Guests: Alice Wong, disabled activist, writer and community organizer; editor, "Disability Intimacy: Essays on Love, Care, and Desire" s.e. smith, freelance journalist whose essay in "Disability Intimacy" is "Skin Hunger and the Taboo of Wanting to be Touched" Yomi Sachiko Young, Oakland-based disability justice activist; dreamer whose essay in "Disability Intimacy" is "Primary Attachment" Melissa Hung, writer, editor and journalist whose essay in "Disability Intimacy" is "The Last Walk"; founding editor in chief, Hyphen - an independent Asian American magazine; former director, San Francisco WritersCorps

One of the most overlooked experiences is menopause and perimenopause and impact on mental health. Societally we treat it like a disease or an ‘untapped market' to sell more products. Many people feel isolated and alone in their mind-life experiences, and for some this can have extreme consequences. Today we have three experts by experience and training talking about how the system fails menopausal people and sharing their lived experiences in approaching this time of life as an incredibly transformative experience. We also discuss: how early trauma and sexual abuse can re-emerge in midlife the “second peak” of psychosis spiritual emergency and holistic healing dealing with mortality and fear of dying sacred rage in menopause developing new archetypes for the "elder" the medicalization of pms and menopause hormone replacement therapies, estradial, etc. diagnostic overshadowing capitalism and the menopause “market” Bios Leah Harris is a psychiatric survivor, activist, and independent journalist. Their work examines mental health and disability policy, with a focus on deinstitutionalization and involuntary psychiatric intervention. Leah's writing appears in Truthout, the Disability Visibility Project, The Progressive, and Mad in America; and in the anthologies We've Been Too Patient: Voices from Radical Mental Health (North Atlantic Books (https://www.wevebeentoopatient.org/⁠) and the forthcoming Mad Studies Reader (Routledge). Their memoir-in-progress, NONCOMPLIANT, traces two generations of psychiatric survivorship and resistance in their family, alongside in-depth reporting and analysis of America's failed mental health policies. https://www.leahiharris.com/ Lynda Wisdo, MA, CYT: Lynda is a survivor of childhood trauma and a menopause/trauma-related Spiritual Emergency.  After several years of mind/body healing, she went on to earn an MA degree in Transpersonal Studies and Spiritual Guidance along with certifications in Trauma-Informed Yoga, Transpersonal Hypnosis, Reiki, and Tarot for Women.  She has written a memoir about her experience with spiritual emergency titled Menopause in Crisis—When Spiritual Emergency Meets the Feminine Midlife Passage (⁠https://menopauseincrisis.weebly.com⁠) her hope being to offer insights and support to women who may be undergoing similar experiences.  She can be reached through her websites at https://lyndawisdo.weebly.com  or by email at lyndawisdo@gmail.com Trauma & Menopause Conference 2024: Healing the Effects of Trauma Through the Challenges of Perimenopause with Lynda Wisdo, MA, CYT https://www.eventbrite.co.uk/e/trauma-menopause-conference-2024-the-intersection-of-trauma-menopause-tickets-798528298637 Marie Brown, PhD is a licensed clinical psychologist working in private practice and the public mental health system in New York City. She is the current President of the US Chapter of the International Society for the Psychological and Social Approaches to Psychosis and an original co-founder of Hearing Voices Network NYC. She is co-editor of Women & Psychosis: Multidisciplinary Perspectives (with Marilyn Charles) https://rowman.com/ISBN/9781498591935/Women-and-Psychosis-Multidisciplinary-Perspectives⁠ and Emancipatory Perspectives on Madness (with Robin Brown) https://www.routledge.com/Emancipatory-Perspectives-on-Madness-Psychological-Social-and-Spiritual/Brown-Brown/p/book/9780367360160⁠. Website: https://mariebrownphd.com/ Twitter: @BrownMarieC Resources: Yale Study on Menopause & Psychosis + All resources mentioned here: https://www.jazminerussell.com/blog/menopause-trauma-psychosis-holistic-approaches-in-midlife-undoing-patriarchal-conditioning Sessions & Information about the host: ⁠⁠JazmineRussell.com⁠⁠ Disclaimer: The DEPTH Work Podcast is for educational and entertainment purposes only. Any information on this podcast in no way to be construed or substituted as psychological counseling, psychotherapy, mental health counseling, or any other type of therapy or medical advice.

Episode Summary This week on Live Like the World is Dying, Margaret and Leah talk about disability, preparedness, and covid. Guest Info Leah Lakshmi Piepzna-Samarasinha (They/She) is a writer and structural engineer of disability and transformative justice work. Leah can be found at brownstargirl.org, on Instagram @leahlakshmiwrites, or on Bluesky @thellpsx.bsky.social Their book The Future is Disabled: Prophecies, Love Notes, and Mourning Songs can be found: https://bookshop.org/p/books/the-future-is-disabled-prophecies-love-notes-and-mourning-songs-leah-lakshmi-piepzna-samarasinha/18247280 Their book Care Work: Dreaming Disability Justice can be found: https://bookshop.org/p/books/care-work-dreaming-disability-justice-leah-lakshmi-piepzna-samarasinha/16603798 Host Info Margaret (she/they) can be found on twitter @magpiekilljoy or instagram at @margaretkilljoy. Publisher Info This show is published by Strangers in A Tangled Wilderness. We can be found at www.tangledwilderness.org, or on Twitter @TangledWild and Instagram @Tangled_Wilderness. You can support the show on Patreon at www.patreon.com/strangersinatangledwilderness. Transcript Leah on Disability and Preparedness Resources Mentioned: StaceyTaughtUs Syllabus, by Alice Wong and Leah: https://disabilityvisibilityproject.com/2020/05/23/staceytaughtus-syllabus-work-by-stacey-milbern-park/ NoBody Is Disposable Coalition: https://nobodyisdisposable.org/ Power To Live Coalition: https://www.powertolivecoalition.org/ Disability Visibility Project article about Power to Live : https://disabilityvisibilityproject.com/2019/10/26/call-for-stories-powertolive/ Power to Live survival skillshare doc: http://tinyurl.com/dissurvival Long winter crip survival guide for pandemic year 4/forever by Leah Lakshmi Piepzna-Samarasinha and Tina “constant tt” Zavitsanos https://www.tinyurl.com/longwintersurvival Pod Mapping for Mutual Aid by Rebel Sydney Rose Fayola Black: https://docs.google.com/document/d/1-QfMn1DE6ymhKZMpXN1LQvD6Sy_HSnnCK6gTO7ZLFrE/mobilebasic?fbclid=IwAR0ehOJdo-vYmJUrXsKCpQlCODEdQelzL9AE5UDXQ1bMgnHh2oAnqFs2B3k Half Assed Disabled Prepper Tips for Preparing for a Coronavirus Quarantine. (By Leah) https://docs.google.com/document/d/1rIdpKgXeBHbmM3KpB5NfjEBue8YN1MbXhQ7zTOLmSyo/edit Sins Invalid Disability Justice is Climate Justice: https://www.sinsinvalid.org/news-1/2022/7/7/disability-justice-is-climate-justice Skin Tooth and Bone: The Basis of Movement is Our People (A disability justice primer): https://www.sinsinvalid.org/disability-justice-primer DJ Curriculum by Sins: https://www.sinsinvalid.org/curriculum Partnership for Inclusive Disaster Strategies: https://disasterstrategies.org/ Live Like the World is Dying: Leah on Disability & Preparedness **Margaret ** 00:15 Hello, and welcome to Live Like the World is Dying, your podcast for what feels like the end times. I'm your host, Margaret killjoy. And I always tell you that I'm excited about episodes, but I'm really excited about this episode. It put me in a better mood than when I started the day that I get to record this episode. Because today, we're going to be talking about disability and preparedness. We're gonna be talking about Covid abandonment. And we're gonna be talking about a lot of the questions that... a lot of the questions that people write us to talk about that they have about preparedness and I think that we can cover a lot of those. Not me, but our guest. But first before the guest, a jingle from another show on the network. Oh, the network is called Channel Zero Network. It is a network of anarchists podcasts and here's a jingle. [sings a simple melody] **Margaret ** 01:08 Okay, and we're back. So, if you could introduce yourself with your name, your pronouns, and then I guess just a little bit about how you got involved in thinking about and dealing with disability and preparedness. **Leah ** 02:00 Sure. Hi, my name is Leah Lakshmi Piepzna-Samarasinha. She and They pronouns. Right now I live in Pocomtuc and Nipmuc territories in Western Massachusetts. And that is a great question. I will also just plug myself briefly and be like I'm a disability justice and transformative justice old sea-hag, aging punk of color who has written or co-edited ten books and done a lot of shit. Okay, so when I was sitting on the toilet thinking about "What do I want to tell Margaret when we get on the show?", I was actually thinking that my disability and my preparedness routes are kind of one in the same because... So I'm 48 [years old] now and I got sick when I was 21-22. So like back in 96-97. And, it was the initial episode that I got sick with chronic fatigue, ME, and fibromyalgia. And I was just super fucking ill and on the floor and was living in Toronto as somebody who was not from Canada. And, you know, I was just sick as hell, like crawling to the bathroom, like sleeping 18 hours a day. The whole nine. And I'd been really really deeply involved in anarchist of color and prison abolitionist and antifascist organizing and lots of stuff. I had a community, but it was 1997, so most of my community was just like, "What you're sick? Why didn't you make it to the meeting? We have to write all the prisoners with the [untranslatable]." And I was just like, "I just.... Okay, great." Like it was a really different time. There was no GoFundMe, mutual aid, Meal Train, someone brought me some soup. Like, know you, we weren't really doing that. And people really did not have a consciousness around, "You can be a 22 year old brown, nonbinary femme and be really, really sick and be disabled." So something I think a lot, and I've said before, is that disabled people are really used to the concept that no one is going to save us and we are really not surprised when state systems abandoned us because we live in that all the time. And so I was just like this little 22 year old sicko weirdo who'd read my Octavia Butler--and, in fact, that was part of the reason why I was like, "Toronto, great, there's gonna be more water and less heat." Okay, wasn't totally right about that. But, you know, I mean, I really had to save myself and I kind of was like, "Alright, I don't have..." Like, I'm working off the...I'm working under the table. I have hardly any money. I'm gonna make my own herbal medicine. I'm gonna grow a lot of what I eat from my backyard. I'm going to store water. I'm going to run a credit card scam and get a lot of dried goods and live off of those for like a year. [Margaret Hell Yeahs] Yeah, stuff like that. I feel like from there, over the last, you know, 26 years like it's....like, that's the route. The route was, you know, similar to a lot of people, I think of my generation, we were like on the cusp of looking at the current crises of like hot fascist war, hot eugenics war, hot climate crisis, and being like, "It's coming," and I started being like, "Yeah, like don't...don't think that it's all going to work out okay and that somebody else is going to fix it for you." So, I would say that's where my initial route--and then do you want to jump in? Or can I jump ahead like 20 years or something? **Margaret ** 05:10 Honestly, you could jump ahead 20 years later. I'm gonna come back and make you talk more about Octavia Butler. But we'll do that later. **Leah ** 05:16 Let's talk more about Octavia Butler because I have a lot of stuff about Octavia Butler and how she thought of--and I think sometimes misused--like nowadays [this is probably not the word but it's untranslatable] and also about disability. [Margaret "Oooohs" curiously] I know. We can get to that. Okay, so that's one route. And then, you know, I mean, I was always kind of like a little weirdo, where it's like, yeah, I grow most of my own food--or as much as I can--and it's not a fun green hobby. It's like, I'm broke as fuck and I need to grow a lot vegetables that fucking, you know, I can mulch and that can stay growing into December, you know? I stashed stuff. Something I also think a lot, is that as disabled people--and we talked about this a little bit when we're emailing--I think we're always prepping whether we call it that or not. Like most disabled folks I know just do shit. Like if you get a prescription and you have extra, you store it, you know? Like, if you can get a double dose, you put that aside. And then maybe you have it for yourself. Or, there's so many disabled mutual aid networks I've been a part of where someone's--I mean, before Facebook clamped down, this is really common on a lot of Facebook disabled groups--someone would be like, "Yo, does anyone have an extra five pills of such and such?" and I've seen total strangers for 15 years of disability justice be like, "Yep, what's your address? I do. I'm gonna mail it to you. I have my old pain meds. I've got this. I've got that." But, um, yeah, like doing the jumping forward that I promised you, so for people who don't know, disability justice as a movement was founded around 2005 by a group, a small group of disabled Black, Asian, and poor and working class, white disabled folks, who were all pretty, you know, gay, trans, and radical. And they were like, "We want to bring a revolutionary intersectional out of our own lives and experiences and issues. We want to create a disability movement that's for us and by us that's not just white, single issue, often cis, often male, often straight." Like, we want to talk about the fact that 50% of bipoc folks who were killed by the cops are also disabled, deaf, neurodivergent, etc... just to give one example. So, you know, that was '05 in Oakland, you know, Patti Burn, LeRoy Moore, Stacy Milbern, Ely Claire, Sebastian Margaret, Stacey Milbern Park, you know, the six. And I was living in Toronto and I moved to Oakland in '07 and I was kind of around for some of the beginnings of it. There's two stories I want to bring in. One actually predates my move. It was right when I was getting ready to leave Toronto, I got invited to go to this reading by a bunch of queer--I think all white--disabled radical folks. And I was just like, "Oh?" And I did the whole, like, "Am I really disabled enough?" and then it was like, "Oh, it's gonna be really depressing." And then it was really awesome. And I was like, "Whoa, disability community. Life saving." But it was kind of one of my moments of being brought into the disability community because there was this writer who was there who, their reading series was actually a choose your own adventure where there's four disabled, queer, and trans folks who are having a sex party and the zombie apocalypse happens. And then they have to figure out how to survive it without abandoning each other. And it was all like, "Okay, you all get to the van, but then there's no ramp. What do you do? Oh! You get this accessible ramp, but it smells like perfume and somebody has NCS. What do you do? And I was just sitting there with my mouth open--and it was also interwoven with like, 'Yeah, and then somebody's fucking somebody else with like, you know, a dildo strapped to their prosthetic,'" and I was like, wow, I fucking love disability. Like, sign me up. But I gotta say briefly, that was one of my first examples of like, you know, there's a really important phrase in Disability Justice, which is, "No one left behind, " right? Like, that's one of the core organizing principles. And that was kind of.... Before I even heard that phrase, I was like, "Fuck like this is..."--because I'd been around antiauthoritarian, quasi prepper, like "shit's gonna happen, we have to get ready." But I was always kind of quiet in the corner closeting my disability being like, "Well, shit, like, what if I don't have my meds? Or what if I'm too.... What if I can't run away from, you know, the Nazis or the zombies because I have a limp and I walk with a cane? Like, what if?" And that was my first example of this cross disability fantasy space of like, "We're going to escape together and we're not going to let anyone get eaten and it's going to mean really being creative about access stuff." Okay so jump ahead to, right, then I moved to Oakland and then I ran into actual Disability Justice community through Sins Invalid, which is an incredibly important foundational Disability Justice group, and through a lot of friendships I started making with other QTBIPOC disabled folks and my really, really good friend Stacy Park Milbern, who, people should totally know her work. She's incredible. She was one of the best movement organizers that the movement has ever seen. And we met online. And she was living in Fort Bragg, North Carolina with her family on the base because her family's military. And she was a queer southern, working-class, Korean and white, you know, physically disabled organizer from when she was really young. And then she was like, "Okay, I love my family, but I'm literally hiding my gay books in the wall because my mom's Pentecostal." So, yeah, and she's like--I literally realized she tells the story a lot--she's like, "Yeah, like, I realized I hadn't really left the house for a couple months and like, this is gonna be it," and she's like, "I was literally watching Oprah. And Oprah said, 'No one's coming to save you.'" And she was like, okay. She's 21 years old. And then through online, disabled, queer of color community there was this--or she organized--this initiative called To the Other Side of Dreaming where she moved crosscountry with Mia Mingus, who's another queer Korean organizer who was a friend of hers, ad moved to the Bay Area. And so that was around 2010-2011. And then in 2011, what happens but the Fukushima nuclear accident, right, disaster? And we're all on the West Coast--and it's completely ridiculous bullshit, looking back on it now--but all of these Bay Area folks were like, "Oh my God! Radiation!" And some people pointed out, "Look, you know, we're not.... There's...it's a big ocean. The people who really have to worry are in Japan and areas around it, so whatever?" But it was one of those times where we were like, fuck, this is a really big nuclear accident and we are sort of close and it's making us think about disaster. And I remember just going to fucking Berkeley Bowl, which is this big, fancy, organic supermarket and people had bought out all of the burdock all the fucking seaweed. And I was like, "Oh, my God, these people." But out of that, Stacy started having conver--and I and other people who were in our organizing network of disabled, majority BIPOC--were like, "What are we going to as disabled BIPOC if there is an earthquake, fascism, like another big disaster? And Stacy said, really bluntly, she's like, "You know," and she was a power wheelchair user. She used a ventilator. You know, she's like, "Yeah, I am supported by electricity and battery dependent access equipment." And she's like, "Well, I'm going to be really honest, my plan has always been, if something happens, I'm just going to lay down in my bed and die, because I don't think that any emergency services are going to come save me and the power is going to run out in 48 hours. And then we were like, "Okay, that's super real. What if, through our amazing collective access stuff we're doing, we could figure out something else?" And we had this meeting at Arismendy bakery, which for folks who know, is like a worker owned co-op chain, Our friend Remedios worked there. It's wheelchair accessible. We met there after hours. And it was just like, 12-15 of us who started just sitting there and being like, "What are the resources we have? What are the needs we have? And we made this map, which I still have, which I think I shared with you, which is just like, "Apocalypse, South Berkeley/Oakland Map 2011," where we were like, "Okay, you know, when the power goes down, the communication goes down. We're gonna meet at this one traffic circle because people who are wheelchair users can roll up. And we're gonna bury note paper in a mason jar with pens and we're gonna leave notes for each other. But we're also going to agree to meet there the day after at noon." And I was like, okay, my collective house, the first floor is wheelchair accessible. We have solar, we have a landline. And we have a lot of space. So like, let's meet there. And then someone was like, "We've got the one accessible van. And we know, it's only supposed to fit 4 people, but we can fit like 12 in there." And we started.... Like, I just think about that a lot because it's, I think it was a really important moment where it was important...the stuff that we did like that--you know, the actual strategies and the resources we started talking about--but it was also that it was the first time in my life that I was like, "Okay, we're not--not only are we not going to just die alone in our beds, I'm also not going to be the one person who survives. Like, I can actually survive with, and because of, other people. And we're all disabled BIPOC with a couple of disabled white folks. And we can actually collectively strategize around that. And this will be my last leap forward, because I see that you're like, "I want to ask you stuff." So, you know, eight years go by, and in that time we all do an incredible amount of Disability Justice organizing and strategizing. And, you know, in 2019.... And a lot of it started to be around climate disaster on the West Coast. Like, I moved to Seattle in 2015. The wildfires started being really bad a year or two later. A lot of us were involved in mask distributions, just spreading information about smoke safety and survival. And then 2019 was the infamous year where the wildfires came back and Pacific Gas and Electric, in all of its fucking glory, which is the main--for people who don't know--it's the main utility electrical company in Northern California. They announced two days before wildfires were going to really impact the Bay, they were like, "Oh, so we've decided that our strategy is going to be that we're just going to shut down all the power in Northern California. **Margaret ** 14:52 No one uses that. [Sardonically] **Leah ** 14:53 No one uses that. And they're like, "Oh, if you have a medical need, call this number, and we'll make sure to leave it on at your house." and Stacey was, "Okay." She had just bought her house, the Disability Justice Culture Club in East Oakland, you know, which was her house but also a community center, de facto community center, that housed a lot of disabled folks of color. And she was like, "I was on the fucking phone for eight hours. Like, I never got through." And she and some comrades started this campaign called Power to Live where they were like.... It started out as, "Okay, we can't save everybody, but we're not going to just lay down and die. What do we do?" So it started out as like, okay, let's identify who has housing that still has power. There's some people in Richmond, there's some people in this neighborhood, but then it also developed into this thing where it was just this amazing crowdsource survivalist resource where it was everything from, she's like, "Here's a number. Here's an email. If you need something, text us, call us, email us. We have a team of eight people. We'll figure it out. If you have something to offer, do it too." And then some of it was that people were sharing everything from generator information, to generator shares, to people in different areas-- like I was in Seattle and we were like, "Okay, we will mail you generators and air purifiers, because it's obviously all sold out in the Bay, but we can get it here and get it to you." The thing that always stands out to me is people being like, "Oh, yeah, here's how you can use dry ice and clay pots to keep your insulin cold if refrigeration goes down." And there's a lot more I could say about that action and how amazing it was. But for me, when I think about the through line, I'm like, that moment in 2011, when we all got together, and were like, "What do we do?" we were prepping for what we couldn't fully predict, you know, the exact manifestation of eight years later. We're there and we're like, "Okay, there's wildfires, there's smoke, there's no fucking power, and we've not only built our organizing base, we built our relationships with each other so that we can actually trust each other and more or less know how to work together when this shit actually is hitting the fan to create something that's really life giving. Okay, I'll shut up. That was a lot. **Margaret ** 16:52 Now I have so many questions about all of it. **Leah ** 16:53 Yeah, ask me all the questions. **Margaret ** 16:55 Because there's a couple...there's a couple of questions and/or feedback that we get with Live Like, the World is Dying a lot. And some of them are very specifically disability related, and you covered most of them, but I want to highlight some of them. Like a lot of people write and are like, "Well, I rely on the following thing that is provided by civilization. So my plan is to lay down and die." Right? This is a--and I know you've kind of answered it--but I.... I want to ask more. Okay, I'll go through all the things. Okay. So to talk more about what "No One Left Behind," means? And then the other thing that really stands out to me is that, you know, when we were talking, when we were talking about what we were going to talk about on this on this episode, I was saying, okay, we can talk about, you know, making sure that preparedness is inclusive and open and includes disabled folks, or whatever, and you pointed out, really usefully, the, the necessity to reframe it. And I think that the story you just gave is a really beautiful example of this, where it's less about, like, "Hey, make sure to pay attention to the people who need canes," you know, or whatever, right? Like, you know, "make sure you keep track of folks based on disability." And more than like the thing you just described, is the thing that we're always trying to push, which is that you need to make a list of all the resources and needs within your community and then figure out how to meet those needs and instead of assuming that we can't meet those needs, figuring out how to actually do it. And so I love that it's actually like.... It's actually disability justice movements that we should be learning from, I mean, or participating in, depending on our level of ability, or whatever, but I just find that I find both of those things really interesting. And so I wonder if you have more that you want to say about alternatives to laying down and dying, and specifically, to tie into the other thing that I get asked the most or that I get the common feedback is--because we talk a lot about the importance of community for preparedness on this show--a lot of people don't feel like they have community and a lot of people write to be like, "I don't have any friends," or "I don't know any other people like me," or, you know. And so, I guess that's my main question is how do.... [Trails off] Yeah, how do? **Leah ** 19:22 So how do you make community when you don't have community? Alternatives to lying down and dying? And was there a third one in there? **Margaret ** 19:28 I was just highlighting how cool it is that y'all sat there and made a list of resources and needs, which is exactly what.... Instead of deciding things are impossible, just being like, "Well, let's just start doing them." You know? **Leah ** 19:40 And I think.... Okay, so I'll start there. Like I think that like.... You know, Corbit O'Toole, who's like a, you know, Disability Rights Movement veteran and like older Irish, disabled dyke, you know, in Crip Camp, the movie, she's like, "Disabled people live all the time with the knowledge that the society wants thinks we're better off dead," right? Like one...back in the day, you know, there's a--I think they're still active--one of the big Disability Rights direct action organizations was called Not Dead Yet, right? [Margaret Hell Yeahs] I think this is the thing is like I think that sometimes abled people or neurotypical people are not used to sitting down and making the list. And I think that even if disabled people aren't preppers, we're used to being like, "Okay, what do I need? Fuck, I need somebody to help me do my dishes. Oh, I can't bend over. I need to figure out what is the access tool that will allow me to pick up something from the floor when my that goes out? Like, if my attendant doesn't show up, can I have a..." You know, like, my friends always like, "Yeah, I've got a yogurt container by the bed in case my attendant doesn't show up so I can not piss the bed. I can lean over and piss in the yogurt container." Like there's a--and I think that.... God, I mean, there's been so many times over the years where I've done or been a part of doing like Disability Justice 101 and me and Stacy would always talk about crip wisdom and crip innovation and people will just look blank like "What are you talking about? You guys are just a bunch of sad orphans at the telethon." It's not just about making the list, it's also about how disabled disability forces you to be innovative. Like, Stacy would always share this story where she's like, "Yeah," like, she's like "Crip innovation is everything from," she's like, "I save a lot of time sometimes by pretending I can't talk when people come over and want to pray over me. You know, I just act like a mute and they fucking leave and they go on with their life," and she's like, "You know, I realized one day, if I took my sneakers off, I could ramp a step if it's just two steps. I could just put them there and I could roll up." Or I mean, there's a million examples.... Or like, because I think it's about prepping and about making the lists and it's also about whatever you prep for, there's always going to be the X Factor of "Oh, we didn't fucking expect that." And I think that's where a lot of prep falls apart is people have their "Dream Bunker." They're like, "Oh, okay, I know exactly what the threats are going to be." And then of course, it doesn't fucking happen that way. I really hope I can swear on your show. **Margaret ** 21:46 You can. Don't worry. **Leah ** 21:47 Great. So, I mean, one example I could give is I'm remembering at, you know, a Sins show when we were in rehearsal, where everyone drove over from Oakland in Patty's wheelchair accessible van, and then the ramp broken wouldn't unfold. So we just were like, alright, who do we know who has welding equipment? Who do we know has lumber? Like, I think we ended up going to a bike repair shop and then they had tools. And then we're like, okay, we'll just bring the rehearsal into the van and do it that way. Like, you have to be innovative. And that's a muscle that I think society doesn't teach you to flex and that often, I think that even people who.... I think there can be a lot of eugenics in prep, you know, whether people are overtly fascist or not, there's a real belief of like, "Oh, only the strong and smart," --which looks a certain way-- "survive," and that "We should use rational thinking to make it all work out." And I think a lot of crip intelligence or wisdom is actually knowing that shit can go sideways 48 different ways and you have to adapt. And you have to just kind of be like, "Well, let's try this." So I think that's one thing. And I think, you know, one thing I'll say is, yeah, just speaking to kind of the reframing we were talking about, I think it's less like, "Oh, remember the people with canes," but, I mean, that's good, but also knowing that we're already doing it and that abled people actually have a shit ton to learn from us. But also, I mean, something.... I mean, the title of my last book is "The Future is Disabled," and it comes from something--it's not unique thinking to me--it's something that a lot of disabled people have been thinking and saying throughout the pandemic is that we were already at like a 30% disabled world minimum and we're pretty close--we're probably at majority disabled right now. Because what, 2% of the world didn't get Covid? Like, how many people have Long Covid? How many people have complex PTSD? We're all sick, crazy, and, you know, needing access equipment. Disability is not out there. It's in here. Like there's no such thing as doing prep that's like, "Oh, only the three Uber Mensch are gonna survive." Like fuck that. And that actually--I mean, sorry, this might be a side note, but a lot of people have probably seen The Last of Us. And I'm just gonna SPOILER ALERT it. You know that famous episode three of those two gay bear preppers in love? Yeah, I loved a lot about it. I was so pissed at the ending, which I'm just going to spoil. So you know, the more artsy, non-prep guy....[interrupted] **Margaret ** 21:47 Yeah, they don't survive. **Leah ** 22:47 Well, no, but like, not only did they not survive but one of them gets chronically ill. And I was just like, grinding my teeth because it's like, "Oh, he's in a wheelchair. Oh, his hand tremors." And then they end up deciding to both kill themselves rather than do anything else. And I was so furious at it because I was like, these are two people who are so innovative. They have figured out all kinds of problem solving. They have an entire small city for themselves. And it's all like, "Oh, no, he can't get up the stairs." And I'm like, really? There was no accessible ranch house you couldn't of fucking moved to? **Margaret ** 24:38 Or like build a bedroom on the fucking ground floor. **Leah ** 24:40 Or youcouldn't get meds? You couldn't? I mean, when his hand was shaking, it was like, "Oh, it's so sad. He's being fed." I'm like, there's tons.... First of all, it doesn't suck to be fed. A lot of things that seem like a fate worse than death are not when you're in them. And also, there's like all kinds of adaptive utensils that they could have fucking raided from medical supply if he wants to feed himself. Or I'm sorry, there's no cans of Ensure? They absolutely have power. They couldn't have made smoothies? Like, what the fuck is this? But beyond that--and I think that a lot of people who have talked about that episode did, I think, have some good analysis of it where, you know, the whole way they set up their prep was they were like, "Oh, it's just the two of us," and the one super prepper guy was like, "I don't even want friends to come over." And the other guy was like, "Hey, actually, we need to make alliances because there's things they have that we don't. And we also need more than just the two of us because I love you, but I'm gonna kill you." And I think that's something to think about is really moving away from the idea that just your little you know, the utopic queer rural community that so many fucking city queers fantasize about or, you know, lover are going to be enough, because it's not. So that actually leads me to, "I don't have community. Where the fuck do I get it?" And I'm like, yeah, that's super real. Right? And I think it's something I actually wrote about in "The Future is Disabled" is that I have people be like--when I write about different crip communities, just even when I talk about stuff on Facebook.... Like my friend, Graham Bach, it's going to be his second year death anniversary in like two weeks, and he was like, you know, white, psychiatric survivor, super poor, amazing sweetheart of a human being, he died.... I mean, he died in his, you know, rent to your income apartment because he was really afraid to go to the hospital and he had cardiac stuff going on. And he was an anarchist, he was amazing, kind, complicated human being. And, I was writing about, like.... I'm going to tell the story and there's a couple things I want to pull out of it. So I was writing about meeting Graham when I was in my early 20s through radical Mad people community, and somebody was reading it and was like "That sounds so great." And I was like, "Yeah, it wasn't utopic. Like, I had to yell back at Graham because he would scream at me and I'd be like, "Shut the fuck up!" Like, there was so many fights. There was so much racism. There were so many older white cis dudes who had electroshock who were jerky or gross, you know? And I guess that was the thing is, I was like, they're like, "Well, how did you find each other?" And I was like, it wasn't perfect. Also, it was very analog working class. Like my friend Lilith Finkler, who is an amazing Moroccan, Jewish, working-class queer femme psych survivor, she would just go to the donut shop where everybody poor hung out and would talk to everybody who wass there who wass crazy who no one wanted to talk to and be like, "Hey, do you want to come hang out at this meeting at the fucking legal clinic? We have a room. We have a snack plate. I'll give you tokens. Let's organize." So I think that's the first thing is that it's not--and I don't mean this in a finger-wagging way--it's not automatic. And also, one of the really big ways that community is often ableist, and that a lot of us get cut out from it, is that a lot of us who need it the most are not particularly easy to love in ableist neurotypical worldview. It's like we're cranky, we're wounded, we're in a bad mood, we're weird. So a lot of the time, I think it's thinking about, first of all, what's one step, one move you can take towards it. Like, can you make one fucking acquaintance and build it. And really think about what it would mean to build some kind of relationship. I think the other thing that I really want to highlight is that a lot of the communities that I see that keep each other alive, that I'm lucky to have been a part of making and being supported by in disabled community, they're not static and they're not perfect. Like, I have networks with people who piss me the fuck off and who, you know, I've sent 20 bucks to people who I'm just like, "I really don't like you, but I can see that you really don't have food," you know, and we're not going to be friends and we're not going to like each other, but I don't want you to die. And that's not...I mean, it's bigger.... There's also people who I'm like, "Okay, you're my ex-abuser. I'm not gonna give you $5. Someone else can give you $5. **Margaret ** 28:42 There's this person who puts a lot of their effort into talking shit on me on the internet and I...they're also broke and have a lot of chronic health issues and I send them money every month. And every now and then I'm like, could this like...could you stop talking shit now? **Leah ** 29:03 I think this is the thing sometimes is like, hey, how about this is the deal, like maybe just say "Thank you," or maybe just talk shit even like 20% less? Because you know, I'm really doing we keep us safe here. I just really want a "thank you." **Margaret ** 29:16 I don't want you to die. Like, I don't want you to starve to death, but I really wish you would be a little bit more open minded to people having different opinions on yours. **Leah ** 29:26 Oh yeah, nuance, right? Yeah, it'd be fucking nice. **Margaret ** 29:29 God forbid. Anyway. **Leah ** 29:31 No, it's good. I guess my TLDR would be to start where you are and start with "what's one thing you can do? What's one person you can reach out to?" And I think, you know, I don't know if this is true for everyone who reaches out to you and it's like, "Well, I don't have anybody," but I think that social media and online connectivity is a real double-edged sword because for some of us who are isolated, it can create both online communities that can sometimes become in-real-life community and, either way, can be sources of some community or support. But I think.... I mean, you know, I'm a Generation X'er and I've just seen social media get more and more chokehold and just turn into fucking the panopticon meets a mall, you know? [Margaret laughs] And I think it's hard because 12 years ago I was part of really early online disabled spaces, which were great because so many people were like, "Well, I'm so isolated in my small town or in my city," or "I can't leave bed, but this is great. I'm meeting with other people and we're building these connections and it's actually more accessible for me to be real about my stuff from like my bed with a heating pad." And now I just think it's so chokeholded that it's hard for us to find each other. So it's much more common for people to be like, "Wow, I'm seeing all these people who have millions of followers and a shiny brand and I just feel like even more of an isolated loser." And then at the same time, I think people are like, "Well, how did people meet each other before this?" And I was like, "Yeah, like, you go to the coffee shop or the donut shop. You put up a flier. You go to the library. You like, I don't know. I mean, I just remember people I met on the food stamps line, you know, when we got there at six in the morning. And not everything's gonna stick, but maybe something sticks. And I also think about like, I'm going back to 13 years ago in early Disability Justice community spaces where--I mean, I think back to [untranslatable] when I went back to Toronto--which, yeah, big city--but I remember I had so many people come to me and be like, "You're..."--because I was starting to be more out about disability, cuz I was like, "I'm in the Bay and there's these wild people who talk about it and they're not all white people." and so I have so many, especially Black and brown disabled femmes be like, "Hi, you don't really know me, but I have fibromyalgia too," or "I have Lupus too. And like, no one I know talks about that. How do you do it?" And I'm specifically thinking about this time that this person I'm no longer in touch with--but we used to be friends--who's like, you know, queer, brown nonbinary person was like, "Let's just have a meet up of other chronically ill femmes of color," which is how we were identifying a time, and it was four of us, four heating pads, a bottle of Advil, and just very tentatively starting to share things about our lives. And I was like, "Yeah, that was four people." But a lot of that hang out then rippled outward. And it was like, I think it's also important to be like, it's scary to build community. Some tools I want to shut out like, so Mia Mingus, who I mentioned before, she has a lot of really great writing on her blog Leaving Evidence and she created this tool a long time ago now--that some people might be familiar with but for folks who aren't--it's, you know, it's her tool that she calls Pod Mapping. And she actually created it as part of a collective she founded called the Bay Area Transformative Justice Collective that was working on doing transformative justice interventions into intimate violence, specifically childhood sexual abuse a lot of the time, and she had this framework that I find really helpful. She's like, "A lot of..." she was talking about in community accountability, transformative justice spaces and she made a really good point where she's like, "Sometimes we talk about like, 'Yeah, bring in the community. Like, everyone has a community.'" And she's like, "Most people don't have a fucking community, let alone one that can interview in childhood sexual abuse." So she created this tool where she's like, "Let's broaden the idea of what community is." Like, maybe it's that one cousin, that you only talk to once a year, but you could call them in a jam, or it's this hotline, or it is like, yeah, they're a weird church, but you really like their food banks. She's like, "You have to really bring in.... Like, start where you are and do the resource mapping we were talking about" I really liked that tool a lot as a place for people who are like, "What's my community?" because I think it's a big word and really being like, "What does that even mean to me?" and like, "What's one place that can start building it?" And I also want to shout out, Rebel Sydney Black, who's a friend of mine who passed this June, at the beginning of the pandemic, he created this tool called Pod Mapping for Mutual Aid that was specifically aimed at disabled folks who were trying to pod map during Covid--and we can provide the link and stuff like that--but I would say that those are two places to start and then I want to get to alternatives to lying down and dying. And then I'll stop. **Margaret ** 34:04 Okay, wait, wait, before we get to that I want to talk more about the building community thing. **Leah ** 34:08 Yeah, please. **Margaret ** 34:09 I think you brought up a lot of really interesting points. And one of the things that I really like about it, you know, talking about having like...you're broadening the idea of what counts as community, which I think is really useful. And one of the things I realized is that a lot of times when I was younger, I was like, "Y'all say 'community' and you just mean the people that you like," right? And that didn't make any sense to me. Community seems like the people where you have a shared interest, whether the shared interest is you live on the same block, or whether the shared interest is an identity, or whether the shared interest is an interest that you're trying to see change, or whatever. It doesn't mean people you like. It's a different thing. Friends are the people I like, right? Well, mostly. I'm just kidding. I love all of you. I mean, there's a lot of people I love that I don't always like. Anyway, so I don't know, and so I think that one of the things that stuck out with me about what you're gonna say and I want to highlight is the idea that--or maybe I'm misreading it--but like "pick issue to work" around seems like a good useful way. Especially if you struggle to just have friends, right? That's not like the thing that you're good at. But maybe there's a thing that you want to work on? Or having that meetup where it's like, oh, all the following people who have the following things in common, let's meet up and talk about it. Or honestly, activism is a really good way to meet people and work closely with people about things. And it doesn't necessarily have to mean these are now your friends. But they can be people where you rely on each other. And that doesn't have to be the same. I think about it a lot because I live in a fairly isolated and rural environment where there's not a lot of people around me who are culturally.... Whatever, there's not a lot of out, queer people where I live. There's not a lot of punks. And I'm like, that's okay. I talk to my actual neighbors instead. I mean, some of them, not all of them, but most of them, you know, they're who I would rely on in a crisis, because they're right there. It doesn't mean that we have the same ideas about a lot of stuff, you know? But we have similar ideas, like, "Let's not die," right? And so that's enough sometimes. Anyway, I just wanted to.... **Leah ** 36:12 No, I really appreciate it. And I mean that makes me kind of think about, when you were talking, I was like, yeah, you know, there's friends, there's communities, and then there's survival networks, which can include contacts, right? Because I just think about what would I do right now, if some should happened? And I was like, I've got long distance kin and long term friendships and relationships ofvarious kinds and I also have--because I moved to where I live, which is like semi-rural, but definitely more rural than where I've lived before--and I'm just like, yeah, I have a small number of friends. But there's like people who I know who I can...who are neighbors who like, maybe we don't know a shit ton about each other but I could be like, "Hey, this thing?" or "Hey, do you have water?" or, "Hey, let's do this." I think it's a lot about thinking about what are your goals? Is your goal intimacy? Is your goal survival? Is your goal friendship? Because you need different levels of trust and commonality depending on those things, right? I also think, and this is the thing too, I think something.... I think a lot of times because I've had people be like, "Well, I don't have community," also, I've heard that. And I think that a lot of times the context, I hear it in is people being like, "Well, I have care needs, but I don't have any community." So then there's also the really big thorny question of "need" and like being cared for is actually very complicated. It's very risky. It's very vulnerable. It's not safe a lot of the time. It may feel a lot easier to just be like, "I don't have any fucking needs." And so there's a lot, I will just say that there's a lot of unpacking that needs to do around like, "What would I need to be cared for? What are my lower risk needs that I need help with? What are my higher risk needs?" right? Like, there's people who I can.... There's some needs I have where I'm like, I don't need to trust you super, super deep politically or on an intimate level to let you do that. There are certain needs where I'm like, that's only going to be people where we've really built a lot of fucking trust because if this goes sideways you could really stuck with me. Right? And I think that when you're starting from nowhere, I think often where people get stuck is like, "Where I am feels like I have nobody and nothing. And I want to get to like the thing I've read about in your topic science fiction, where you know, it's Star Hawk and everybody loves each other. And how the fuck do I get from A to B." And I think the solution is like, yeah, you're not gonna get to fucking "Fifth Sacred Thing" right away--and that book is complicated. **Margaret ** 38:29 Yeah, It was very influential on my early.... **Leah ** 38:31 Oh yeah, when I was 18, I just wanted to fucking move there. And now I'm like, "Oh God, this is embarrassing. There's some shit in here." I'm like, "Wow, everybody's mixed race, but everyone's Black parents are dead." Wow. Cool. Nobody really thinks about race. I'm like, I'm gonna throw up. And like, you know, BDSM is just violent....Okay, sorry. We're not going to get into that. **Margaret ** 38:47 Oh my God, I don't remember that part. **Leah ** 38:49 Oh, yeah. No, where it's so violent. Like, "We're just loving." And I wrote a really no passion paper for school, because we actually had to read it in a college class I was in, and I was like, "Why are they not into leather sexuality?" And my professor was like, "Okay, 18 year old..." but yeah. **Margaret ** 39:04 I mean, legit. You 18 year old self had a legitimate critique. **Margaret ** 39:08 Yeah. **Leah ** 39:08 Yeah, no, there's a lot there. But, um, but jumping back, I guess it's just like, you know.... And I think this feels like disabled wisdom too, it's like, what can you do with the spoons or the capacity you have? Like, what's one move you can make that small? And then can you build on that? Yeah, but can I talk about alternatives to lying down and dying? **Leah ** 39:28 Yeah. Well, I think...I mean, this is the thing, is like, I'm a survivalist, but I'm not like anti-civilization in the ways that some people are. Like, I want meds, you know? And I think that's something that other crips I know talk about a lot, which is like, you know, we're really against this way that some people, including some people who would like align themselves with like Healing Justice who are like "We're like, oh, yeah, we just have to go back before colonialism and capitalism, and just everyone lived on herbs and it was great." and I was like, "Nah, bitch, I need surgery and meds." Like I want it all. Like, I love non-Western pre-colonial traditional healing. Absolutely. And I've had friends who died because they didn't get their surgeries on time. Like my friend LL died because nobody would give him a fucking kidney because they said he was too fat. And I'm just like, my good future involves.... I mean, and he's one of millions right? So like, my good future involves that we have surgical suites. And I'm just like, you know, honestly, also, a lot of times that worldview just seems so white to me, because I'm just like, listen, a lot of like, global south places figure out how to have field hospitals, right, in really dire and low-resource situations. So I'm sorry.... **Margaret ** 40:40 I mean, only Europoe's ever figured out surgery. No one else has done surgery until Europe showed up. [Said sarcastically implying the opposite] **Leah ** 40:45 Yeah, not fucking ever. [Also said sarcastically] **Margaret ** 40:46 Said the people who are like, "bite down stick and I'll saw your arm off." **Leah ** 40:49 Yeah, so I mean, I guess one thing I would just say is like, I would say that and I would say like, you know, really...I want to like lift up and encourage people to look at--and they can be hard to find--but look at cultures, look at organizing initiatives where people were like, "We can have our own ambulance, we can have our own like..." And when that's not there, to think about what it would mean to have medical care after the apocalypse, right? What would it mean to make hormones, make drugs, synthesize chemicals, and it's not impossible. I think that we're still in the in between of like, okay, we gotta figure out how to do that. But, um, you know, I'm thinking about, Ejeris Dixon, who's my friend and comrade, and, you know, we co-edited "Beyond Survival" together, which is a book we wrote that came out right at the beginning of the pandemic about stories and strategies from how people are actually trying to create safety without the cops. Ejeris always talks about how they were like, "Yeah, like, in Louisiana, you know, in the South, you know, like in the 50s, and 60s, and before I believe, there were all kinds of Black run ambulance and 911 services," because regular 911 wouldn't come to Black communities. Right? And they, I mean, something that I've heard them say a lot over the years is like, "We don't have the people's ambulance yet. But we could." And then it makes me also jump to some friends of mine who were in Seattle who were really active as street medic crew during the rebellions after George George Floyd was murdered by the police in, you know, 2020 in the summer, and specifically in, as some people remember, Seattle managed to have 16 square blocks break off from the city for a while, CHOP, Capitol Hill Organized Front. And so what people don't know is that the cops were like, "Okay, fuck you. We're not going to...If there's any 911 ambulance calls, we're not going to fucking let anyone go in there." So the street medic crew had to deal with a lot of really intense situations. And then after that, like a lot of us folks, like some folks were already nurses or EMTs and a lot of folks who were involved went to nursing school or EMT school and we're like--and I don't know where it's at now--but they were like, "We want to create,"--because right now in Seattle, there's, if somebody is having a crisis on the street, like a medical or a mental health crisis or an altered state crisis, there's no non-911 crisis response that you can call. There's either you go down the stairs to talk to somebody or there's the cops, right. And they were like, "We can get a van. We can get medical equipment from eBay." And you know, I don't know where they're at with that, but they were really organizing around like, "Yeah, we could get a defibrillator. We could get oxygen. We could get blood pressure cuffs. We could get fucking..." you know? And I think that that shit gets complicated in terms of insurance and regulation and the State and the medical industrial complex, but I want us to keep thinking about that. I also, and then I'll wrap up because we have other questions to get to, but it also makes me think about, I mean, I don't know if folks are familiar with Gretchen Felker Martin's amazing science fiction book "Manhunt," right, which is about.... **Margaret ** 43:50 I haven't read it yet. **Leah ** 43:52 It's so fucking good. Okay, so I won't give it away. But just for people who don't know, I'd say it's the one kind of gender sci-fi book where "Oh, a virus, you know, affects people with certain chromosomes or certain that dih-dah-dug that's not TERFy because it's a book that, you know, she's trans, and it's a book that centers trans women and nonbinary communities and there's like one or two trans masculine characters. But the two main trans femme, like trans women characters in the book, they're like, they have to, they're like, "Yeah, like, we're going on raids to get, you know, hormones, and, you know, different, like chemical drugs we need. And we're also figuring out how to synthesize them from herbs and different substances." And it's not easy. It's a struggle. But there are organized communities of trans women and allies that are fighting to do it. And I'm just like, yeah, and I mean, it's an amazingly well written book, and she's incredible, and I fucking loved it. And it's just beautifully written and really just--sorry, I won't gush too much but go read it, it's incredible--I just really also appreciated it because she was like, "Yeah, of course we're gonna get our hormones after the end of the world. Like of course it's possible." And I will also.... I have some criticisms of the ableism in it, but M.E. O'Brien and--fuck I'm forgetting the second author's name, but every you know, "Everything For Everyone," that book. I appreciated how in the good future society, they're like, "Our priority is making sure that insulin and chemical drugs and hormones are accessible and free to everybody." And I was like, I guess I would just push people towards there are ways of imagining the future where we can defeat capitalism but still have medical care of all kinds. We can have Reiki and acupuncture and we can also hormone surgery and transplants. And we might be doing it better because it's not controlled by fucking corporations and assholes. Sorry, that's my soapbox. Um, okay. I will say in terms of people being like, "That's really nice. But what about me?" I would be like, you know, I mean, right now in the war on trans America, there are so many people already who are like, "Yeah, I'm stockpiling meds. I like doing meds trading." I would say it goes back to what we started about, which is like, "Okay, what are your needs? What are the things that you're worried will not be there if the world ends?" Right? And we also need to recognize that the world's already ending and it's ended for some of us a bunch of times already. But I would be like, make that list and then really be like, "Alright, how do I get it?" You know, and if I can't specifically get it, are there like backups that I can get? And it may be stuff that you can research on your own. It also might be stuff where it's like, "Okay, are there trans [untranslatable], disability justice organizations, nationally, globally, locally, that you can hit up and be like, "What are folks thoughts about this? Are there ways that we can resource share?" Because I think it's about pills. I think it's also about durable medical equipment. So in terms of stuff that requires power to live, I think about generators and I think about generator shares. And I think about things like...there's a story when Hurricane Sandy hit New York 10 years ago, there were a whole bunch of us where...there's a guy Nick who's in community who, physically disabled guy, 13th floor, accessible apartment, you know, the lights went out, you know, really dependent on electricity to change out the batteries on his ventilator. There's a whole crew of disabled folks, like people walked up and down those fucking stairs every eight hours to take the spent batteries, figured out, "Hey, you know, what still has power, the fucking fire department." People were walking down recharging the batteries every eight hours. And it was allies, it was ambulatory, it was disabled people who could walk. It was fucking hard. But people were like, we're not.... Nick and his friends were like, "We're not just going to die. We're needed." So I wanna shoutout that and just for possibility modeling, I really want to, one other place I want to shout out, is an org that used to be known as Portlight but was now known as the Center for Inclusive Disaster Strategies, which is a disabled-led organization that is about like, yeah, when there's a climate or other disaster, they figure out ways of getting like accessible fucking evacuation methods to places because they know...we know, there's millions of examples of people who are just left to die in nursing homes or like, "Oops, the bus doesn't have a ramp," or, you know, I really want to name that during Katrina, some people might know about, you know, the situation with the nursing home that was there were a lot of folks who were wheelchair users or had high care needs were fucking killed by medical staff because the medical staff were like, "We're gonna actually euthanize these folks without their knowledge or consent." [Margaret exclaims] Yeah, no, there was actually a movie on HBO about it I think semi recently. Because "that's easier than figuring out how to fucking get people in the medivac ," right? Yeah, and so the Partnership for Inclusive Disaster Strategies, I'm still getting to know them, but I have friends who are involved and they're like, "Yeah, we're aware this is an issue." So yeah, let's work with the fucking Cajun fucking Navy to like make sure that you can get folks with different bodies onto evac boats. Like let's figure out what disabled survival looks like. And I will just say, and this is the last thing I swear, for me, I mean, we all know water is important. Like, I can't lift 54 pounds. Guess what? So can't--which is, you know, a seven gallon right, like a five or seven gallon whatever--I'm just like, yeah, so I can actually have smaller jugs of water that I can lift. So yeah, I have a bug out plan, but I also have a real Shelter in Place plan because I'm just like, yeah, my apartment's accessible for me. So yeah, I got a shit ton of water right here and I'll be good for a while. And I also have a plan B for.... Okay, there's...I've got my filtration equipment, so when that runs out, I'm close to some water sources where I can go and I can filter that shit. And that's me thinking about what works for my body. Think about what works for yours and then plan out from that. Okay, I'll really stop talking now. **Margaret ** 49:44 No, no, but there's so much there. Even just like to go to the weight of water, right? The thing that I ran across that I'm like--I'm reasonably able-bodied and such like that, right--but I live alone and so obviously there's this specific thing where like.... Well, one, I mean, abledness is always a temporary position.... **Leah ** 50:04 Yeah, you're going to get disabled, you're gonna get sick and disabled. **Margaret ** 50:07 Like it literally happens to--unless you, I don't know, die very quickly, very suddenly, probably violently, you're gonna go through a period of disability in your life, you know? And so my argument is that machismo is anti-prepping. And one of the ways that I would say is that like, there's now, I think.... Okay, so cement bags, they come in 50 pound bags traditionally, right? But now there's more and more, I think, there seems to be more and more 30 pound bags, right? And I used to be like, "Oh, whatever, I can lift a 50 pound bag. So I should carry the 50 pound bag." And then I'm like, well, it was not a helpful way to look at it. It is far better for me to just have 30 pound bags of cement because they're easier to carry and I'll get tired less. And I, you know, at the time that I was pouring these bags, I lived up a hill about probably the equivalent of a seven storey walk up to this cabin that I was building, right. And so I had to carry each and every one. It was way nicer that I carry 30 pound bags. And if your preparedness doesn't include the fact that your level of ability will change in different situations, then it's not very good preparedness. And and so like, I don't know, I mean, like most of my water jugs are four or five gallon jugs. I use jerry cans. I think most of them are five gallon. And I hate the six gallon ones and the seven gallon ones. They're just heavy and annoying. And it's like I can give lift them but there's no reason why I should. Unless I'm specifically working on lifting weights. And then the other thing that you talked about that I really think about a lot, you know, is this idea, of does your version of disaster mean that every doctor dies? Or like, does your version of disaster mean everyone who's ever made insulin dies? Like, it's possible. Sure, you could have 90...if almost everyone on Earth dies, then everything is a little different. But most disasters don't actually..... Most disasters destroy ways of living and large numbers of people, but not the majority of people write. Most people survive most disasters. And, people are like, "Well, our organizational systems are what produce insulin," and like, no, people produce insulin and they use organizational systems with which to do it. But different organizational systems can also produce insulin. Like different organizational systems can use the same infrastructure sometimes and make the things that we rely on. And it came up with this like whole thing where people on the internet were like, "Ah, if you're an anarchist, you hate disabled people because in anarchy, you can't have insulin," **Leah ** 50:28 That's gross. **Margaret ** 52:40 It is a complete misunderstanding of anarchism. It is not a lack of organization, it is a different type of organization. **Leah ** 52:46 Anarchy is responsibility. **Margaret ** 52:48 Yes, totally. **Leah ** 52:50 Sorry, sorry. **Margaret ** 52:52 That's why people don't like it. People are afraid of it because they actually have to.... It's the accepting no one is coming to save us except us. You know? No, I love that way of framing and it also annoys anarchists when you tell them this too. **Leah ** 53:07 Okay, well, I mean, you know, so I worked at Modern Times books, which was, you know, is no longer around, but was a long time anarchists and anti authoritarian radical bookstore in the Bay. And we had the only public toilet in all of the Mission because everybody else was like, "No, you gotta buy something." and in my interview, they're like, "How will you make the store better?" And I was like, "I will make the bathroom not smell horrible." Because, you know, it was just like a bust, everyone was pissing in there. And so I taped up a sign that said "Anarchy is responsibility. If you spray the fucking toilet with urine, please wipe it up. Together we can have a toilet." And somebody called me out and was like, "That's capitalist." And I was like, "No, just wipe your piss up or we're not gonna make the revolution. Like, come on." But yeah, they got pissed at me about that. [Both laugh] But yeah, I mean, I think that's a really good point. And it's like, you know, I mean, I think that it does point to, you know, I think a structural problem in a lot of our movements, which is like, yeah, we don't we need more people who know some basics of chemistry and can synthesize stuff. Like, that's, you know, we need more people who've gone to some kind of science or engineering school who can figure out how sewage works and how you synthesize insulin and how you synthesize hormones and like, basic surgery. And I think there's a lot of hopefulness because I--maybe it's just the folks I hang out with--but I have a fair number of friends who are like, "Yeah, I'm gonna be a nurse practitioner. I can give you an abortion. I can sew up your wound. I can help you figure out this thing." And I'd love for there to be more of us who can go to PA school or

Episode Notes In this special episode, Disability After Dark has partnered with KUOW in Seattle to bring you an episode of one of the most notable podcasts of 2023, Ten Thousand Things, where host Shin Yu Pai -- the current reigning Civic Poet of Seattle! -- sits down with award-winning disability rights activist Alice Wong to discuss her long history of advocacy. From lobbying her university for disability-related curriculum to being appointed to the National Council on Disability, not to mention founding the Disability Visibility Project, Alice is an awesome human being who's disrupting the status quo. Needless to say, this is a “can't miss” conversation, and if you want to hear more like it, be sure to follow Ten Thousand Things on your favorite podcast app. (And tell them we sent you!) With that said, here is Ten Thousand Things. Enjoy! This podcast is powered by Pinecast.

This is a story about the way we make a statement. Alice Wong, a Chinese-American disability activist, came into her own as a public personality through creating and hosting a podcast on disabled voices. Her status as a person with a disability in an ableist world gave her access to a world of perspectives and voices that we don't usually hear on public radio. And she prioritized putting disabled voices on the air. But losing her own voice and replacing it with an app forced her to reckon with a new relationship to voice. Related links:Disability Visibility ProjectDisability Visibility PodcastYear of the Tiger by Alice WongResistance and Hope: Crip Wisdom for the People, edited by Alice WongWe can only make Ten Thousand Things because listeners support us. Make the show happen by making a gift to KUOW.And we want to hear from you! Leave us feedback online.Ten Thousand Things is produced by KUOW in Seattle. Our host, writer, and creator is Shin Yu Pai. Whitney Henry-Lester produced this episode. Jim Gates is our editor. Tomo Nakayama wrote our theme music. Additional music in this episode by Jaylon Ashaun and Stan Forebee.Search for Ten Thousand Things in your podcast app!Partial funding of Ten Thousand Things was made possible by the Seattle Office of Arts and Culture Hope Corps Grant, a recovery funded program of the National Endowment for the Arts, plus support from The Windrose Fund.

If you're listening to this episode when it's released, we're now in May of 2023, which is also AAPI Heritage Month. There are a lot of names for this month, which is great, as there are also a lot of countries and ethnicities represented by the simple word “Asian”. But one group of people that is often left out of the overarching Asian umbrella are the biracial Asians - and, given our own identities in this space, this is something that we experience regularly.    So, to kick off AAPI Heritage Month from a perspective not often discussed, we're focusing today on our personal stories of being biracial Asian women, and what identity, belonging, and inclusion mean when we look at being Asian in this country through this lens. And, since it's us, we'll be throwing in a little bit of history, laws, and psych along the way.   What to listen for:  Sara & Misasha's personal experiences growing up biracial as one of the OG legally biracial folks in this country's history The census data - and how we could only check one box until 2000! The Loving v. Virginia decision, and how that opened up the door to our families being allowed to exist How we want more Asian people to stop gatekeeping who is “Asian enough” and instead, start banding together with other marginalized groups to push back against White supremacy – because it's all of us or none of us. In this episode, we highlight the podcast Ten Thousand Things.  In many Chinese sayings, “ten thousand” is used in a poetic sense to convey something infinite, vast, and unfathomable. For Shin Yu Pai, the award-winning poet and museologist who hosts the podcast, the story of Asians in America is just that. In Ten Thousand Things, Shin Yu explores a collection of objects and artifacts that tell us something about Asian American life – from a second-hand novel to a blue suit worn by Congressman Andy Kim on January 6. Ten Thousand Things is a vibrant, diverse, and bittersweet celebration of Asian America ... and a challenge for all of us to reimagine stories of the past and future.  Featured guests this season include Disability Visibility Project podcast host Alice Wong; transgender and non-binary, poet and educator Ebo Barton; and NED founder Eason Yang; among others.

In many Chinese sayings, “ten thousand” is used in a poetic sense to convey something infinite, vast, and unfathomable. For Shin Yu Pai – award-winning poet and museologist – the story of Asians in America is just that. Introducing Ten Thousand Things, a special series about modern-day artifacts of Asian American life, created and hosted by Shin Yu Pai and produced by KUOW.The initial name of the series, The Blue Suit, drew inspiration from the suit worn by congressman Andy Kim on January 6 as he was photographed collecting trash following the U.S. Capitol insurrection. Today, the garment lives in the Smithsonian's collection – and within the fabric of Asian America.In the podcast series' newest season, host Shin Yu builds on her focus of commonplace objects that tell the complex story of Asians in America with an expanded name and collection of objects. Ten Thousand Things is a vibrant, diverse, and bittersweet celebration of Asian America ... and a challenge for us all to reimagine stories of the past and future. Featured guests this season include Disability Visibility Project podcast host Alice Wong; transgender and non-binary, poet and educator Ebo Barton; and NED founder Eason Yang; among others.The new season of Ten Thousand Things debuts on May 1, 2023, and new episodes release weekly on Mondays on KUOW.org, Apple Podcasts, NPR One, and wherever you get your podcasts.

Growing up near Indianapolis in the '80s and '90s, Alice Wong was eager to leave. "I knew life was going to be so much better once I got into college," she said. Alice was raised in an immigrant household, and while there was a local Chinese-American community, she rarely saw people who looked like her in the mostly white community of disabled people she was also a part of. Back in 2020, Alice and Anna talked about how she learned to advocate for herself as a young adult, finding a community that felt like home, and managing finances on Medicaid. Since then, Alice has published a new memoir, Year of the Tiger: An Activist's Life, and then, last summer, faced a medical emergency that left her without the ability to speak or eat. She recorded an update for us using a text-to-speech app.   You can read more of Alice's recent essays in Teen Vogue, for CNN, and on the Disability Visibility Project's website.  

For this episode, I speak with Cheryl Green and Thomas Reid, both fantastic podcasters. Cheryl Green has worked as an Access Artist, making creative and immersive captions for 10 years and audio description for five years. She brings her lived experiences of chronic illness and invisible disabilities to her access work with independent content creators and awesome, disability-focused organizations, including Superfest International Disability Film Festival, Disability Visibility Project, and Kinetic Light. She has made several documentary films and produces and transcribes her podcast, Pigeonhole. Thomas Reid Shortly after becoming blind in 2004, Thomas Reid decided to re-ignite a dormant interest in audio production. After years of combining his interest in audio with advocacy, he was selected as an Association of Independence in Radio New Voice Scholar in 2014. During that same year, he began his podcast Reid My Mind Radio - featuring compelling people impacted by all degrees of blindness and disability. Occasionally, he shares stories from his own experience as a man adjusting to becoming Blind as an adult. Thanks for listening, and if you haven't already, please give us a ⭐⭐⭐⭐⭐ review on Apple Podcasts or Spotify.Pod Access Survey: https://bit.ly/PODAccessOtter.ai Transcript: https://otter.ai/u/PbL6YiMBIHnsG3ZioVzBfucoFKgPDF Transcript: https://3bd6e695-b492-4878-afa9-f79d8b09e0c4.usrfiles.com/ugd/3bd6e6_1f8953f530fb4035a0028b53af6c7f34.pdfShow Notes: https://bit.ly/TI-Pod-AccessCover Art Image Description: black background; think inclusive logo in the top left; rainbow-colored waves overlayed with headshots of Cheryl Green and Thomas Reid; text reads: Cheryl Green & Thomas Reid, Pod Access; MCIE logo in the bottom rightCreditsThink Inclusive is written, edited, and sound designed by Tim Villegas and is produced by MCIE.Original music by Miles Kredich.Support Think Inclusive by becoming a patron! Hosted on Acast. See acast.com/privacy for more information.

On this episode, we discuss our Books & Boba November 2022 book club pick, Year of the Tiger: An Activist's Life by Alice Wong, a memoir by the founder and director of Disability Visibility Project, about her life growing up as a person living with disability as well as a Chinese American in the mid-west, her work in activism and advocacy, and all the food and geeky pop cultural things that she loves. The book is also as a great resource for those looking  for ways to be a better ally to the disabled community.Check out Alice's work and additional resources for the book at: https://disabilityvisibilityproject.com/ *Support the podcast by purchasing books at our bookshop *---Follow our hosts:Reera Yoo (@reeraboo)Marvin Yueh (@marvinyueh)Follow us:FacebookTwitterGoodreads GroupThe Books & Boba December 2022/January 2023 pick is Babel by R.F. Kuang** Note that Babel is published by a Harper Collins imprint which is in the middle of a strike with the HCP Union seeking fair pay for workers. Books & Boba supports the HCP Union, as does the author R.F. Kuang, and invite you to support the union by amplifying their message on social media (Twitter / Instagram) and donating to their strike fund. **This podcast is part of Potluck: An Asian American Podcast Collective

This week, to continue Off-Kilter's ongoing series about the limiting beliefs we as a collective must release and replace to pave the way for economic liberation, Rebecca sat down with Cheryl Green and Thomas Reid, two disabled podcasters who are leading a very cool new project called the Pod Access Initiative, in partnership with the Disability Visibility Project. They have a far-ranging conversation about why it's so important to diversify the voices out there in media—as hosts and guests and content creators of all kinds—and how the Pod Access Initiative is working to remove barriers to entry for people with disabilities in media, while taking on limiting beliefs around whose voices “deserve” to be driving the conversation when it comes to podcasts and more. For more from this week's guests: Check out Cheryl's podcast Pigeonhole and Thomas's podcast Reid My Mind Radio Learn more about Alice Wong's Disability Visibility Project and subscribe to the Disability Visibility Podcast Here is Cheryl's podcast episode with Alice Wong about “good radio voices” Follow Thomas (@tsreid) and Cheryl (@WhoAmIToStopIt) on Twitter

This week, to continue Off-Kilter's ongoing series about the limiting beliefs we as a collective must release and replace to pave the way for economic liberation, Rebecca sat down with Cheryl Green and Thomas Reid, two disabled podcasters who are leading a very cool new project called the Pod Access Initiative, in partnership with the Disability Visibility Project. They have a far-ranging conversation about why it's so important to diversify the voices out there in media—as hosts and guests and content creators of all kinds—and how the Pod Access Initiative is working to remove barriers to entry for people with disabilities in media, while taking on limiting beliefs around whose voices “deserve” to be driving the conversation when it comes to podcasts and more.  For more from this week's guests: Check out Cheryl's podcast Pigeonhole and Thomas's podcast Reid My Mind Radio Learn more about Alice Wong's Disability Visibility Project and subscribe to the Disability Visibility Podcast  Here is Cheryl's podcast episode with Alice Wong about “good radio voices” Follow Thomas (@tsreid) and Cheryl (@WhoAmIToStopIt) on Twitter To get in touch with the Pod Access Initiative, email thepodaccess@gmail.com. 

Episode 146 with Sandy Ho: A Discussion of the Work and New Book (Year of the Tiger) of Alice Wong, Sandy's Partner in Meaningful and Change-Inducing Work in Disability Circles and Beyond Sandy Ho is guided by the light of the closest disco ball. Born in the year of the tiger, her boldness has shown up in her community organizing and activism as the founder of the Disability & Intersectionality Summit. She is also one-third of the team behind the “Access is Love” campaign in partnership with Alice Wong and Mia Mingus. Her essay “Canfei to Canji: The Freedom of Being Loud” is included in Disability Visibility: FirstPerson Stories from the Twenty-First Century edited by Alice Wong. She produced the discussion guide for Year of the Tiger: An Activist's Life by Alice Wong (September 2022). In 2022 Sandy received the Disability Futures Fellowship. Currently she is the director of the Disability Inclusion Fund at Borealis Philanthropy. Sandy spends her time reading, cheering for the Red Sox, and daydreaming while drinking tea. She identifies as a queer disabled Asian American woman.    Donate to Alice Wong's Recovery Fund: https://www.gofundme.com/f/alice-wong-stay-in-community Alice Wong is the founder and director of the Disability Visibility Project, an online community that fosters and amplifies disability media and culture. A Chinese-American activist and writer, Wong fights for access and representation for people with disabilities from all backgrounds. Wong launched the Disability Visibility Project in 2014. It began as a partnership with StoryCorps to offer opportunities for people with disabilities to record their own oral histories. It grew into an online community that documents and amplifies disability media and culture. Wong, who never felt represented in popular culture while growing up as an Asian-American girl with a disability, wanted to help people tell their stories without the filter of the media, an act she hoped they would find empowering.    Wong's writing on disability issues has been published in numerous media outlets across the country. She has edited two anthologies that feature essays written by people with disabilities, and she published her memoir, Year of the Tiger, in 2022. In 2020, Time recognized Wong as one of 16 notable people fighting for equality in America.  Wong continues her intersectional advocacy for the disability community and the Asian American community through her efforts as an activist and writer. In her own words, “I want to create a world that is reflective of all of us. This is my life's work.” At about 10:50, Pete and Sandy discuss a recent Teen Vogue article, “ 'Year of the Tiger' By Alice Wong Is a Letter to Asian American Disabled Women and Girls,” excerpted from the book   At about 11:30, Sandy responds to Pete asking about what Alice means to the disabled communities and beyond and how she functions as an “oracle”   At about 15:10, Pete and Sandy reflect on how relatively short the post-Americans with Disabilities Act history is and about Alice and her contemporaries as “OGs”   At about 17:05, Sandy gives background on her meeting Alice and “community organizing” and how “Letters to Thrive” served as a catalyst    At about 20:50, Pete and Sandy talk about interdependence and community, including the symbolism of the peaches brought from Masumuto Farms   At about 26:55, Sandy tells of a recent birthday party that Alice threw for her; this serves as a shining example of Alice's copious generosity, selflessness, and care for others   At about 29:00, the two discuss Alice's emphasis in her book and in her life on rest and relaxation and recharging    At about 31:40, Sandy and Pete examine the word “ally” and Sandy discusses what we as a collective can do to be more than just “performative” allies   At about 34:00, Sandy gives out bookstores and libraries of note, including Green Apple Books   Alice Wong's Twitter Page   Disability Visibility Twitter Page   Buy Year of the Tiger: Activist's Life   From Eater Magazine, October 2022: "Constant Cravings"  

This week Henry wants to share a conversation he had with Angela Russell on her podcast Black Oxygen. This episode of Black Oxygen features a conversation with the founder and CEO of Madison365, Henry Sanders.   In this episode Henry talks about key lessons he learned while leading Madison365 during a pandemic, the changing dynamics of leadership in the Madison community and parenthood - he specifically opens up about being a parent of a child with Down syndrome.  Towards the end of this episode Henry highlights the upcoming Wisconsin Leadership Summit. #BlackOxygenPodcast #BlackInWisconsin #WILeadershipSummit #Madison365 #BlackCulture #DopeBlackPodcasts #BlackInMadison #LeadershipInMadison #BlackLeadershipWisconsin #BlackLeadership Links: It's time for a family reunion and you're invited - https://madison365.com/its-time-for-a-family-reunion-and-youre-invited/ Wisconsin Leadership Summit - https://www.wileadershipsummit.com/home/wi-leadership-summit Disability Visibility Project - https://disabilityvisibilityproject.com/

This episode of Black Oxygen features a conversation with the founder and CEO of Madison365, Henry Sanders.   In this episode Henry talks about key lessons he learned while leading Madison365 during a pandemic, the changing dynamics of leadership in the Madison community and parenthood - he specifically opens up about being a parent of a child with Down syndrome.  Towards the end of this episode Henry highlights the upcoming Wisconsin Leadership Summit. #BlackOxygenPodcast #BlackInWisconsin #WILeadershipSummit #Madison365 #BlackCulture #DopeBlackPodcasts #BlackInMadison #LeadershipInMadison #BlackLeadershipWisconsin #BlackLeadership Links: It's time for a family reunion and you're invited - https://madison365.com/its-time-for-a-family-reunion-and-youre-invited/ Wisconsin Leadership Summit - https://www.wileadershipsummit.com/home/wi-leadership-summit Disability Visibility Project - https://disabilityvisibilityproject.com/

It's been a few months since our last purely Mixed Bag Monday episode of Outlook, but we're back, in the middle of August, as summer begins to wind down with a mixture of topics we're discussing. Kerry's been writing and taking classes in writing and the natural world and then reading her words, in community with others. Brian's been having a rather creatively productive month, practicing with other likeminded musical friends he's known and performed with for years. Sometimes, it's nice to work on our creative interests, outlets in a tough world where there's always something serious happening in the news and around the world, and art helps us be able to let loose a little. Whether it's the stress on the healthcare system in this province and across the nation, abortion rights for women and other pregnant people being at risk and how this issue in the States finally gets us to study up about the issue in our own country, or August 15th being exactly one year since western countries pulled out of Afghanistan which leaves Afghan people and especially women behind to face oppression and other dangers, human rights of all kinds are threatened and this impacts everyone around the world. It's important we talk about all this on our show, hosted by two disabled siblings in Ontario, Canada. From saying farewell to a friend or opening beans when you meant to open lentils, it's truly a mixed bag of topics. We are spending the week with family, celebrating our nephews and their birthdays in August, and talking Blue Jays baseball, a super summery subject. And last but certainly not least, to round off the show this week, we're sharing promotional material sent to us by Cheryl Green, on behalf of Green and project partner Thomas Reid on the survey they're launching. With support from the Disability Visibility Project, they're putting out a survey collecting information from Deaf and disabled podcasters and consumers of podcasts on building a network or community of Deaf and disabled content creators and consumers of said content. We'll let them explain all this further, but we then go on to discuss an article Reid wrote for DVP on the discussion around whether giving an image description of oneself is necessary, in meetings and in workshops for example, and if there's equity or discrimination in the practice or in the resistance to it since the pandemic and Zoom made us all faces, in little boxes, on a screen. Fill out the survey for Project Project or Podaccess as it's being known as here: https://bit.ly/PODAccess Find Thomas Reid's article (Making a Case for Self-Description: It's Not About Eye Candy) on the Disability Visibility Project's website: https://disabilityvisibilityproject.com/2022/04/12/making-a-case-for-self-description-its-not-about-eye-candy/ And for more background on Green and Reid, give a listen to this captivating discussion on the podcast Down to the Struts on the episode Disabled Podcasters Unite!: https://www.downtothestruts.com/episodes/season-4-episode-6-cheryl-green-thomas-reid

When it comes to travel, accessibility is often an afterthought. But it shouldn't be. Qudsiya Naqui, host of the Down to the Struts podcast, takes on a journey into the world of accessible travel. She speaks with writer Bani Amor, wilderness specialist Erika Rivers, and Maayan Ziv, the founder of AccessNow, a mobile app that helps travelers find and share accessibility information. Resources: You can learn more about Qudsiya and the Down to the Struts team at downtothestruts.com. Learn more about disability experiences through media and culture. The Disability Visibility Project created by Alice Wong is a great place to start. You can find blog posts and interviews with members of the disability community at disabilityvisibilityproject.org. See what Erika Rivers and her team at Wilderness Inquiry are doing at https://www.wildernessinquiry.org/ Explore Maayan Ziv and AccessNow at https://accessnow.com Follow Bani Amor on Instagram, https://www.instagram.com/baniamor/?hl=en Special thanks to Story District in Washington D.C. for permission to share original audio from their March 2020 show, “She Comes First.” You can learn more about Story District by visiting storydistrict.org.

Hi, Y'all! My friends, Cheryl and Thomas (who are superb podcasters BTW), are taking over the Think Inclusive feed for a few minutes today to tell you about a special survey project they are doing. With support from the Disability Visibility Project, Cheryl Green and Thomas Reid are gathering information about disabled podcasters and podcasts focused on disability and accessibility (or “disability podcasts” for short). They will use this information to develop an online listing of podcasts and resource for disabled podcasters to find each other and find audiences. Awesome right? Here is the link if you are interested in taking the survey. Here is a transcript of the promo from Cheryl and Thomas. Thanks for listening, and we will catch you next week in the feed with another episode of Think Inclusive. - Tim

With support from the Disability Visibility Project, Cheryl Green and Thomas Reid are gathering information about disabled podcasters and podcasts focused on disability and accessibility (or “disability podcasts” for short). They will use your answers to develop an online listing of podcasts and resource for disabled podcasters to find each other and find audiences. Visit our website or click here to fill out the survey!Transcript available hereBuy Qudsiya a coffeeDown to the Struts Substack

Next time you're buying pottery or some cool jewelry, remember that Hephaestus is to thank for that and SO much more. Learn how the Greeks did Hephaestus dirty, and how he's even cooler than you even knew.   Content Warning: This episode contains conversations about or mentions of ableism, eugenics, illness, abuse, the military/war, violence, sex, pregnancy/birth, and sexual assault/rape.   Resources for Disability research: Disability Visibility Project, Alice Wong, Amanda Leduc, Sara Deris, Haley R. Graham, Jay Dolmage, and Dr. William Ebenstein.    Housekeeping - Recommendation: This week, Julia recommends Old Enough on Netflix. - Books: Check out our previous book recommendations, guests' books, and more at spiritspodcast.com/books - Call to Action: Check out The Newest Olympian: Join Mike Schubert, a first-time PJO reader, on his quest to find out if Percy Jackson is the YA series we should've been reading all along! Search for The Newest Olympian in your podcast app or go to thenewestolympian.com to start listening!   Sponsors - Blueland creates everyday eco-friendly cleaning productions that save you money and space, without any plastic waste. Get 20% off your first order when you go to blueland.com/spirits.  - ThirdLove is on a mission to find a perfect bra for everyone. Get 15% off your first order at thirdlove.com/spirits. - BetterHelp is a secure online counseling service. Get 10% off your first month at betterhelp.com/spirits   Find Us Online If you like Spirits, help us grow by spreading the word! Follow us @SpiritsPodcast on Twitter, Facebook, Instagram, and Goodreads. You can support us on Patreon (http://patreon.com/spiritspodcast) to unlock bonus Your Urban Legends episodes, director's commentaries, custom recipe cards, and so much more. We also have lists of our book recommendations and previous guests' books at http://spiritspodcast.com/books. Transcripts are available at http://spiritspodcast.com/episodes. To buy merch, hear us on other podcasts, contact us, find our mailing address, or download our press kit, head on over to http://spiritspodcast.com.   About Us Spirits was created by Julia Schifini, Amanda McLoughlin and Eric Schneider. We are founding members of Multitude, an independent podcast collective and production studio. Our music is "Danger Storm" by Kevin MacLeod (http://incompetech.com), licensed under Creative Commons: By Attribution 3.0.

For this week's Match Volume, Nataly Joseph sat down with Alice Wong, a disabled activist, writer, editor, and the founder of the Disability Visibility Project, which is a project collecting oral histories of people with disabilities in the US. Wong also served as a presidential appointee to the National Council on Disability. In this episode, Wong and Nataly had a conversation about Wong's upcoming new book, Year of the Tiger. The book is a groundbreaking memoir in essays showing Wong's journey to finding and cultivating community and the continued fight for disability justice. Check out her debut memoir here.

Today on NOW with Dave Brown, Christine Mitchell from the Disability Visibility Project discusses the issues the pandemic has caused for people with disabilities. Accessibility reporter Meagan Gillmore shares details of a new report to develop an accessible education standard in Ontario. Community reporter Louise Levesque Burley chats about the importance of maintaining health needs for services animals and guide dogs. Nelson Rego of Cool Blind Tech describes a new Braille device, The Orbit Speak Notetaker. And quizmaster Mike Ross challenges contestants Dave Brown, Karen Magee, and Mark Phoenix in another edition of the weekly news quiz! This is the March 22, 2022 episode.

Christine Mitchell from the Disability Visibility Project discusses the issues the pandemic has caused for people with disabilities. From the March 22, 2022 episode.

The season 4 finale gets a little meta - Qudsiya is joined by Cheryl Green and Thomas Reid to talk about disability and the world of podcasting!Cheryl and Thomas tell Qudsiya about the early days of disabled podcasting and audio production; their creative process; and a new initiative they are launching in collaboration with the Disability Visibility Project to create a learning and collaboration hub for disabled podcasters and members of the disability community who want to pursue podcasting. They also discuss the power of the collective, and the failure of mainstream podcasting to capture the authentic voices and stories of disability.—PATREON: This project is a labor of love, but it also requires resources. Learn more about how to support Down to the Struts by clicking here.—Episode transcript here.

This episode was brought to you by our friends at Velofix. DM @velofixquebec on IG to get your exclusive LE RUN DOWN PROMO CODE and receive 15% OFF your next tune up. On this episode of Le Run Down we had an enlightening conversation with Multisport athlete and disability access strategist, Vasu Sojitra. At an very young age Vasu had his leg amputated but it never stopped him from living a life filled with incredible adventure and challenges. He's an astonishing multisport athlete, excelling at soccer, skiing, running, skateboarding, and so much more, all while working hard to bring positive change. News Notes: https://runningmagazine.ca/sections/runs-races/canadas-andre-de-grasse-and-marco-arop-win-at-pre-classic/ (Canada's Andre De Grasse and Marco Arop win at Pre Classic - Canadian Running Magazine) Show Notes: https://www.thenorthface.com/about-us/athletes/vasu-sojitra.html (Vasu Sojitra (thenorthface.com)) http://www.vasusojitra.com/about (About — Vasu Sojitra) https://www.instagram.com/vasu_sojitra/?hl=en (Vasu Sojitra (@vasu_sojitra) • Instagram photos and videos) https://disabilityvisibilityproject.com/ (Disability Visibility Project – "Creating, sharing, and amplifying disability media and culture") https://www.google.com/search?kgmid=/g/11frdzqtlw&hl=en-US&q=Crip+Camp&kgs=4038839f0c520215&shndl=0&source=sh/x/kp/osrp/1&entrypoint=sh/x/kp/osrp (Crip Camp - Google Search) https://disabilityjustice.org/ (Home | Disability Justice) https://arsenalpulp.com/Books/C/Care-Work (Care Work | Arsenal Pulp Press) https://www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html (Autistic Hoya — A blog by Lydia X. Z. Brown: Ableism/Language) News: https://thenarwhal.ca/fairy-creek-blockades-august-arrests/ (The Narwhal - Fairy Creek is set to become the largest act of civil disobedience in Canada's history) https://chicago.suntimes.com/2021/8/10/22618849/keith-walker-jon-burge-crew-torture-murder-confession-sues-chicago-police-prosecutors (Chicago Sun-Times - Alleged torture victim Keith Walker sues city, prosecutors, Chicago cops) https://www.ctvnews.ca/canada/confidence-dropping-in-rcmp-sensitivity-to-different-cultures-survey-suggests-1.5567644 (CTV News - Confidence dropping in RCMP sensitivity to different cultures, survey suggests) https://www.cnn.com/2021/08/26/politics/policing-supreme-court-race-deconstructed-newsletter/index.html (CNN - The Supreme Court has sided with the police at the expense of Black Americans) How to Help: https://blacklivesmatters.carrd.co/ (Black Lives Matter - Ways You Can Help) https://blacklivesmatter-canada.carrd.co/ (Black Lives Matter Canada) https://docs.google.com/document/d/1ZH0xk5FqYJXwymoue-dnjqJEMj3FplF0Om8wdm8HZd0/edit (Montreal-Based Racial Justice Organizations) https://bailfunds.github.io/ (List of American and Canadian Bail Funds) Educational Materials: https://www.reclaimtheblock.org/home/#resources (Reclaim The Block - Resources and Downloads) http://criticalresistance.org/abolish-policing/ (Critical Resistance - Abolish Policing) https://www.youtube.com/playlist?list=PLYn1EYMdFkqnY2I4I8FzaJoGqEGLdHi6v (Critical Resistance - Breaking Down the Prison Industrial Complex video series) https://www.youtube.com/watch?v=pEVoX-RwMJw&bpctr=1591459509 (Second Thought - America's Police Problem)

Welcome to Episode 46 of the Asian American History 101 podcast! Here it is, the special episode we recorded for the Joy Ruckus Club 4 Festival's podcast stage. We begin with giving a quick history of our podcast including our favorite episode, but we also talk about some well-known popular music bands that had Asian American Leads. Our main segment is a very special interview of Tara Hahn, the lead singer of the ska band, Half Past Two. She takes time to talk to us about music, Half Past Two, and Spinal Muscular Atrophy. SMA Awareness month is in August, and HP2's song Shine is a beautiful tribute to Tara's daughter Neely who has SMA. She also shares a few people that inspire her,  including Laughing at My Nightmare by Shane Burcaw and Disability Visibility Project by Alice Wong. We close the episode by talking about some Asian and Asian American indie musicians that we really enjoy. To learn more, please visit our site at https://asianamericanhistory101.libsyn.com or https://linktr.ee/AAHistory101 for social media. If you have any questions, comments or suggestions, email us at info@1882media.com. Segments 0:26 Opening and Talking About Our Own Podcast 10:51 Well Known Bands with Asian American Leads  12:22 Talking Ska and Spinal Muscular Atrophy Awareness with Tara Hahn 49:48 Asian and Asian American Indie Musicians We Listen To

On this episode of the TWLOHA Podcast, we’re discussing Bipolar Disorder, a mental health experience that by no means receives as much airtime or attention as others tend to. And yet, it's something so many people deal with day in and day out, it’s something we know is relevant to so many of you. Bipolar Disorder is a chronic illness—meaning it has no cure. That being said, this illness is not immune to treatment. Through personalized care, Bipolar Disorder can be managed. You can live with it. And to help us showcase what living with it can look like, we’re joined by educator and advocate Dr. Rachel Kallem Whitman and editor and writer Claire Biggs—two guests whose journeys may differ but still find common ground in their hopes of smashing the stigma that surrounds their diagnoses.   Download a transcript of this episode at twloha.com/podcast. Follow TWLOHA on social media at: twitter.com/TWLOHA instagram.com/twloha/ facebook.com/towriteloveonherarms/   Visit our FIND HELP page of mental health resources at twloha.com/find-help/. Get connected for free, 24/7 to a trained crisis counselor via Crisis Text Line by texting TWLOHA to 741741. Connect with our team by emailing podcast@twloha.com. Learn more about the podcast and previous episodes at twloha.com/podcast. Purchase Rachel Kallem Whitman’s book Instability in Six Colors at oneideapress.com. Use code TWLOHA10 at checkout for 10% off. Read Rachel’s words on the TWLOHA blog at twloha.com/blog/author/rachel-kallem-whitman/.  Watch “I'm not your inspiration, thank you very much” by Stella Young, by going to https://wrt.lv/2MMHAFn.  To buy Madness: A Bipolar Life by Marya Hornbacher, visit amazon.com/Madness-Bipolar-Life-Marya-Hornbacher/dp/0547237804.  Watch Lady Dynamite on Netflix at netflix.com/title/80046193.  Check out “5 Tips For Being An Ally” by visiting youtube.com/watch?v=_dg86g-QlM0&t=6s.  Go to amazon.com/Wishful-Drinking-Carrie-Fisher/dp/143915371X to buy Wishful Drinking by Carrie Fisher.  Visit https://insideourminds.org/ to learn more about Inside Our Minds—a radical mental health organization. To learn more about the Disability Visibility Project by Alice Wong, visit disabilityvisibilityproject.com/.  Purchase An Unquiet Mind by Kay Redfield Jamison at amazon.com/Unquiet-Mind-Memoir-Moods-Madness/dp/0679763309.  Listen to “this is me trying” by Taylor swift by going to youtube.com/watch?v=9bdLTPNrlEg. Read Claire’s words on the TWLOHA blog at twloha.com/blog/author/claire-biggs/.  Credits: This episode of the TWLOHA podcast was hosted by Chad Moses and produced by Rebecca Ebert. Music assistance was provided by James Likeness and Ben Tichenor.

On today’s episode, we talk with https://www.joelchapmanmusic.com (Joel Chapman), the composer of “https://www.voltisf.org/interdependence (Interdependence),” a new piece premiered by https://www.voltisf.org (Volti) of San Francisco on February 13th, 2021. “Interdependence” is a live — yes, LIVE — performance featuring four remote quartets singing together through the wonders of technology that explores interdependence by way of choral music, augmented by our collective understanding of needing each other throughout this pandemic.  We also catch up with Volti’s Artistic Director, http://voltisf.org/meet/meet-us/robert-geary/ (Bob Geary), about the impact and significance of the piece. Listen to http://voltisf.org/interdependence (Interdependence), by Joel Chapman  http://voltisf.org/program/ProgramToRead.pdf (Program Notes) Donate to Volti References https://www.instagram.com/chrisunkim/ (Christine Sun Kim) on Instagram https://leavingevidence.wordpress.com/about-2/ (Mia Mingus) (blog) https://disabilityvisibilityproject.com/about/ (Alice Wong) https://www.talilalewis.com/ (Talila Lewis) https://disabilityvisibilityproject.com/ (Disability Visibility Project) https://www.inunisonpodcast.com/episodes/s02e02 (Episode Transcription) Theme Song: https://music.apple.com/us/album/mr-puffy/1457011536?i=1457011549 (Mr. Puffy) by Avi Bortnik, arr. by Paul Kim. Performed by http://www.dynamicjazz.dk/ (Dynamic)

In this podcast, Emily Nusbaum interviews Alice Wong, disability rights activist and founder of the Disability Visibility project. Their conversation Alice describes the relationship of research to her activism, her experience in the academy, and key questions that scholars should consider when embarking on research with marginalized communities. Below is a transcript of this talk. Alice 0:25 All right, Emily 0:27 my name is Emily Nussbaum, and I'm here with Alice Wong talking with her this evening for the Qualitative Research SIG of AERA. And I am super thrilled to be interviewing Alice for this episode. Alice is the director of the Disability Visibility Project, a thought leader known everywhere in Disability Justice and access issues and author of the recently published acclaimed book Disability Visibility. So Alice, thank you so much for talking with me. Alice 1:11 Thank you for having me, Emily. You know, I also want to say that we have been friends for a long time, and I just don't want it to be a conversation with you. Emily 1:24 Yeah, me too. So, since this is for a group focused on qualitative inquiry, I reached out to you thinking about your work through various forms of social media and the Disability Visibility Project and ways that the qualitative research community can start to think more expansively about what counts as qualitative research, and that kind of thing. But I think if I'm correct, and clarify, of course, that you began a more academic career in sociology. So I wondered if you could just give us kind of that background of how you started thinking about research and what that background was, and then we can talk more about the shift you made to the super important and impactful work that you're doing now? Well, Alice 2:31 Just a long story short...I really...my initial career goals, my vision was to be an academia, I love to Sociology, every semester, I stroke fast, and, you know, I feel like sociology gave me the lens to really see the world and analyze the world. Especially, you know, toward the event of disability, you know, beyond, you know, to create a better model. So, you know, I went to undergrad I majored in sociology, you know, I keep in touch with a bunch of professors. It is a sociology department at Indiana University, in Indianapolis. I can't remember who it was who gave me my first experience as you know a research assistant at, you know, to tell you the truth, I am so grateful for their support and their belief or in me to be their student really activated it, you know, I saw a lot of gaps in the literature. You know, just gaps in research, just, you know, where are the disabled people? You know, there's you know, Emily 4:10 like, in terms of only talks about talk about gaps and disabled people in terms of voice and in terms of like representation outside kind of more deficit based perspectives. Yeah. Alice 4:28 Health care very simple. You know, there's a lot of work guys out there equalities it's so such a structure of medicine but you know, also maybe I've been thinking about like, well what about you know, disability and there's a, you know a lot of work on devious and stigma, you know, Eving Goffman, it was it was earlist people. Goffman and Foucault as well, just really If you think about what are the disabled perspectives, disable scholarship, advance these kinds of ideas, extend these ideas. It wasn't until, you know, that's really where I started studying about disability studies, work of Erving K. Yes, his work. People of the UK, so despite all of her Emily 5:37 social model, Alice 5:41 those were trying to like, wow, like, there are these, you know, there are people doing this work. And, you know, I thought this to be my contribution, I think, to a person particular, that's really was kind of a model of what I wanted to do. To date, Barbara Waxman. Emily 6:04 Yeah, I just need to share if you can share a little bit about who she is, I only just learned about her and her work recently, in the last few months, helping a longtime activist sort of organize some of their materials for an archive for the San Francisco Public Library. And Amazing, amazing. So do you want to just mentioned who Barbara Waxman is? Alice 6:33 Yeah. So Barbara Fay Waxman is a disabled woman, she was both a scholar and an activist. She is no longer with us, you know, rest in power Barbara, and, you know, she was one of these. So, like, unapologetic badass disabled women just totally grounded in the love of her body, the love of her sexuality. She did a lot of work on reproductive sexual health, of disabled women. And that was traditionally one of the areas that I really wanted to focus on. You know, as I did, various, undergrad, you know, just searching, you know, just so, lucky for a bit of people that are out there, that I could kind of connect with or at least identify with. though, you know, I think Barbara was one of those people. And, you know, she had a really long career of being both a scholar and an activist. And she both. She did. She did both. they were hand in hand. Emily 8:06 Yeah, I'm interested in that. And I want to get back to, to more of your work or how you're thinking about it, but this nexus of being a scholar and an activist, and what more traditional kind of thinkers or people who are in more traditional academic spaces, what we what we could take away from that, or what any of those people could take away from that. Because I think that, that that Nexus is very, very important when we think about advancing that critical games of qualitative research. Alice 8:41 Yeah, I would say that, you know, people like Barbara [inaudible] and Paul or his story here. Also they are really both activist, that says a lot about the academy and, you know, marginalized people who are entering the academy they can't separate the lived experiences from the way they teach from the way they relate to students, faculty, staff, I think, you know, what academia does, it sectors normative perspectives, normative body-minds. clearly, you know, white perspective white norms. And you know, this is this place is a lot of pressure to force people to like, separate parts of themselves. It does not encourage people to be who they are or every state that they are. If you think about the way scholars of color are really just not welcome, you know, somebody marginalized students at university scholars enter academic spaces, but they often don't at that staying. this says a lot about structural racism, ableism, and classism, that is pretty much permiated. Yeah. So you know, I think sometimes people ask when I became an activist, you know it is a very simplistic answer, but, you know, being disabled in a in a non-disabled world did not give you a choice. This is not a privilege. [inaudible] You know a lot of what I admired in both Paul and Barbara is that they used their positions, they used their research, they used all of their expertise and skills to serve us as the disability community. I mean, it shouldn't be a radical notion. But I think it still is. Because it goes against every sort of conventional wisdom about getting tenure or being professional. and this is wha I did. So there's different motives. Oh, why they are stroller? Did I beat myself? You know, initially, I wanted to contribute to the field I, you know, thought my perspective my I would like to be somebody that does research as a disabled person, with disabled people versus about or at disabled people. Yeah. Thanks. And I want to just just pause for one second and reinforce that to people that are listening like that, that kind of distinction is really the crux of, say, the academic field of disability studies. And then also the way community scholars are working around and within in disability, right, which is research isn't about or on, or to fix or anything like that for abled people, right. But it's about centering disabled people and non normative body minds and thinking of disabled people as research partners, as well, in the process, so come kind of turning Inside Out of the framework. Yes. I did. Also, I want to share that, you know, lived experience in addition to other skills, they are not mutually exclusive. The big idea misconception or binary that's I want to smash. Because I think people presume that I just have to have the research skills that's it and a theory and all that stuff. And disabled people are the ones who are the ideas or the ones to give feedback versus active partners in the development of theory. Emily 14:33 That's super powerful Alice Alice 14:35 It should be obvious, but it's not. You know, there's still a lot of power dynamics. You know, disabled people are treated in a very tokenistic, exploitative and extractive ways, Emily 15:03 And especially when we think of multiple marginalized disabled people. Absolutely. So Advertisement 15:18 the qualitative research special interest group was established in 1987. To create a space within the American Educational Research Association. For the discussion of ethical, philosophical and methodological issues in qualitative research, we invite you to consider joining the qualitative research SIG today. for members of era, the annual fee for joining the qualitative research special interest group for regular non graduate student members is $10. And the annual fee for graduate students is $5. As members of the QR SIG, you will gain access to a network of fellow qualitative scholars, as well as our many activities, ranging from mentoring opportunities to our podcast series to updates and news related to recent qualitative publications and jobs. Please visit the American educational research associations website at www dot era dotnet to join the qualitative research sake today. Emily 16:15 So I'm curious, because I think this is this notion. I mean, I wrote it down. And I'll just say it again, that is so powerful, this notion of lived experience versus academic skills are not mutually exclusive. Right? And it's like this question of who? Who gets to make knowledge, right? Like, it's a question of epistemology, really, and who, who gets to, to create knowledge. And so it makes me think about why I wanted to reach out to you to do this interview, thinking about your work in the public domain, right. And that you have a very strong social media presence, of course, and can speak about different different, like on Twitter with crypto vote, but also thinking about the Disability Visibility Project. And the way you're kind of work in those areas can help academics. You know, people who are, are in the, in, you know, academic spaces, really think more expansively about this idea of knowledge production. So do you mind sharing with us a little bit about the Disability Visibility Project, sort of how it emerged, what it is? And we can go from there? Alice 17:47 Yeah, sure. Before I get to that response, I want to also say, you know, think who gets to ask and form research questions is really central in terms of just really everything. Not just for creating knowledge.But who gets to ask the question, because even Emily 18:21 a step before that, right. Unknown Speaker 18:22 I think that asking the question is really about identifying that something is a phenomenon? I feel like, you know, what people did before in all disciplines that academia is more people with, you know, a variety of perspectives, but also located different places, different different contexts. You know we don't ever use the term research questions. Disabled people ask a lot of amazing questions all the time. But this is actually such a rich, you know, rich kind of intellectual work. But the think is that it doesn't take place within certain structures, so it's not recognized as intellectual work. So, you know, we need to also kind of unpack all of that stuff about, you know, really research. Yeah, asking question to produce in new knowledge, because, again, it's often Those who do have the means of production are the ones driving the qeustions. You know should it really be in the hand of those who are the focus of inquiry. Emily 20:16 I know, like I asked a previous question, I brought this up, but this thing even brings up this notion of like, I mean, I think a lot about this and some of the partnerships I have with community scholars about like, what do we then do with like, those questions and what comes out of them? Right, and how do we not use it? How do we use it for the purposes of the individuals that have framed the questions? Right, versus the purposes that people in the academy often use use them for? That? Alice 21:02 All of these kind of feelings and thoughts about who has control, you know creative control, just the ability to essentialize and articulate ideas, you know, that doesn't take place in a vacuum. These things happen, you know, in collaboration with others, did offer, you know, building on, you know, past work or past ideas. I think that leaves a lot of people out. Right now, I'm kind of not limiting myself to do stuff inside or outside the academy. I feel like I can be wherever I want to be, you know. I might just like have a day pass. [inaudible] that's fine by me. Because, you know, I like to kind of, kind of get by. You know, [inaudible] at a bit of [inaudible] but also, they will be engaged, to be what's really exciting that I don't think of these days as separate. I believe that disabled people belong everywhere. Emily 22:48 Yes. Alice 22:49 And you know while I have clearly, just to be honest, I do think that I have been driven out of academia. For a lot of reasons, But I don't regret it. You know, I just I think it was probably the smartest decision I ever made. To be honest. Emily 23:26 Can I offer before you start, like, I want to say that this project and thinking about this project as research, is, to me so transformative and powerful. And when we think about wanting to win, we're a part of an upcoming book project that I have with another colleague and our purposes in this edited volume to I think we called it quote, radical possibilities, maybe I can't quite remember but thinking about how something like the Disability Visibility Project can allow us to think so much more expansively. Right about this question of what counts, right. So I just wanted to give that intro of why of the super important connection, I think, between the DVP and qualitative research and the qualitative research community. Alice 24:32 I did yeah, we could use the terms content, media, culture and research of us interchangeably. whatever you want to call it. It's, it's useful. it's valid its a certificate. So the reason why I started it was out of my own frustration at the history about disabled people by disabled people. Yeah, I started in 2014. it was stories by disabled people here at artist history, nonprofit or storyboard, it leads up to the 25th anniversary. Yeah, what is it? 2015. I did that as a way to generate and document our stories, not to kind of wait around for historians. You know, I feel like that today was one of the most exciting days. Yeah. Because people say like, your story matters. You don't have to be an icon. You don't have to be a leader or famous. You know, your story is part of this growing collective of like, what is the disability experience like in the 21st century? Why can't we participate in the creation and documentation of our history? And the fact that story core has a relationship with our library of congress, that allows participants to have their story archived there. You know, this isn't just for academics for historians. It's for the public. And that's, that feels powerful. Yeah, feels really good. It feels like a something that we're putting out to the world that is for the future. Yeah. Which is precisely I think, so much of the intention of research. That's, it leads to Emily 27:34 orientation. Alice 27:37 Yeah, so I think that's where the idea started and You know, I'm just one person. So, you know, I just, I didn't know, like, I really didn't know, Emily 27:53 your impact is so huge, you know, that. I hope you know, that. Alice 27:57 You know, I guess but, to be honest, I just used the tools that I had in front of me, which is a website, which was social media advantage, you know these are the things I had available to me. You know, this snowballed. I thought it would just be to the detriment of what you're doing. And I think it's part of your interest to interview hundreds that's you know, people don't want always to tell their story. Emily 28:49 You don't need a history to create a history and knowledge base that has not existed before. Alice 28:56 Yeah. You know, clearly I didn't want to give of myself to only histories which could be you know, form a lot of perspectives and oddest form just a ball too. You know, people who are deaf and hard of hearing so, you know, I branched out and started publishing just essays about website. I started a podcast in 2017 which is really amazing because here I am talking to you in December 2020. I just published my 92nd episode. Emily 29:44 Oh my gosh. Alice 29:47 That's wild to me. Yeah. It's been a real adventure and a real labor of love to be able to jump around, try different methods, use different formats, for community to be involved in multiple ways. And I think thats for researchers and academics to have so much work. You're a qualitative researcher and you just do a page or a study or projects. There's so many jumps in your work. It really needs to reach people. You know, I would hope that academics think beyond their journal articles beyond their presentations you know, just like, you know these days our jobs are not rewarded in the system and that was a part of the problem. No incentive to create. Emily 31:38 like you're talking about like that sort of embedded forms of like, ableism, and racism and classism that exists within the Academy, and what, you know, traditional researchers are expected to produce. Alice 31:51 Yeah, I don't get the kind of pressures that people are under, especially here or junior faculty, or, you know, adjunct or graduate students, you know, because you do have to perform at, perform up to a certain point, right, this is the reality that I experienced as well. Emily 32:23 Ready to reality? And most places still? Alice 32:27 Yeah, and I think anybody who claims that otherwise is not really being honest. You know, to be real. Yeah, yeah, I think, you know, this is a real reflection point where, you know, for political and cultural climate, where people and institutions are being held accountable. Yeah. This is your time, if not now. to really think about what are your intensions? How do you practice your values? Yeah. Not just in your work life. But in your everyday life. Sure. You say, oh, you're an ally, or that you're in solidarity with others? Where does that show up? Like, what are the ways that you're actually doing this. And I think that You know in one of the ways. You know I could never to be more charitable. you know, yeah, put your work out there. And to really receive the critique, to receive, you know, real questions, by the people that are the most impacted. You know I think not receive that in a defensive way. Emily 34:22 And going beyond like, you know, in in a qualitative research class, or in most textbooks, there's something called a member check where you run your analysis by the people that participated. But I think what you're talking about speaks so much more deeply about the relational ways that researchers and participants are co researchers are engaging and allowing those who have more privilege and power to be asked really difficult questions. Yeah, thinking far beyond what gets talked about, I think in the typical typical qualitative research course or text? Alice 35:04 It's not a checklist. It would be more thoughtful, yeah, more intentional, Also just as scholars like, was your own with this is or areas that you're just thoughts as well first there I think, You know, there's also this very weird you know, job expectation of researchers and like, you know scholars often you don't know at all and i don't i think the offer is a art fair of expectation and I think you'd use a walkway when I see scholars who are just really open it just say what they know and what they don't know Yeah. Like with that frustration research make great art never ever neutral. if we can we can all start from that place. Yeah. I feel like that's where you really start out it really effective relationships with people from the outside. Yeah. Oh, sorry. Do you know there's all those times visible labor thats never going to be compensated. Yes by the academy and I think one other activity that's really undervalued is relationship building. Emily 37:13 Absolutely, absolutely. Alice 37:15 And I feel like that. For those of you, you know, this is it doesn't happen overnight. Today you have a study, you're gonna be you're getting IRB approval right now. You're like, Oh, shit, like, I better, you know, do outreach. You can't rush this stuff. And people will sit here doing this with the right intention. You have to lay the groundwork. You have to be of service to others. Yeah. And be really transparent. To be able to build relationships with people, whether they're going to be participants in your study, or as you know, true creators. Absolutely. There's just a lot of kind of foundational work that requires a lot of your own labor. But I will say that this is something that is absolutely valuable. It is really it rich. It is. Emily 38:50 I mean, it's essentially about the kind of the kind of research that you're that you're promoting. Alice 38:58 Yeah. They deserve you as well. Get along. Nice to serve everyone. That's, you know, that's just their place. Yeah. Emily 39:15 Oh, gosh, Alice, thank you so much for sharing. I feel like if I didn't, if I didn't try to wrap this up, I could stay on here with you chatting about different things for a really long time. But I want to I want to be respectful of your time and I know that everyone who's listening is so appreciative to hearing your perspective. So thank you so much for sharing your work and your thinking and your your prompts for sort of the academic community of qualitative researchers is super important. Alice 39:59 Also, before we end, I have some more questions. So this is from a book chapter for a book that you are [inauditble], I'm going to, people might not ever read this or come across this book chapter that I wrote for Emily and Dr. Lester. So here are just some of my thoughts and questions for qualitative researchers. Number 1, how are you uplifting to amplify the scholarship of people outside of the academy? Second, are you speaking in your classes and in panels that you're presenting and coauthoring in ways that emphasize your research partners? Here is another questions, how many non-academic scholars do you cite in your work and if it is not many, why is that? Emily Oh gosh, that is so important. Huge questions. Alice And two more questions. If you are conducting research about a marginalized community, how will you solicit feedback and critique from people with that experience? And a final question, which I think is probably, the thornest question, and could actually be an entire separate podcast episode, before starting did you research about a marginalized community ask yourself if you are the best person to do this? And whether it is appropriate to defer to other scholars who have been doing the work? Emily That is a good one. Alice: And Hopefully that leaves our listeners with some food for thought. Emily Thank you so much Alice Wong.

Interview Thoughtline Interview In this episode of the What's The Matter With Me? Podcast, we're presenting an interview with newly-elected San Mateo School District Board Member Ligia Andrade Zuñiga, who is a disabled wheelchair user. I interviewed her because I thought it was remarkable for a disabled woman to win an election. It originally aired Monday, December 28th from 6-7PM.on KFJC 89.7FM on the Thoughtline public affairs program. This material was developed to bring under-represented voices onto the air waves at KFJC, in order to "promote and increase diversity at the station." Powerful Representation What Ligia says is very powerful, and it resonated with me, about how disabled people are invisible. My airname on KFJC is Hemroid The Leader. Please do not be alarmed. it is just an alias. Connections Interviewing Ligia was suggested to me by Alice Wong of the Disability Visibility Project, who we've covered before, and hopefully we'll hear from again.

Is it just me or are y’all TIRED?! This week I get real about how exhausting 2020 has been and how we can take some time this month to rest and recover. I’m also talking with disabled activist, podcaster, and founder/director of the Disability Visibility Project, Alice Wong. Listen in as Alice talks about how her creative work informs her activism and why it’s important to preserve disabled history and follow the lead of the disabled community. For more information about Alice Wong, the Disability Visibility Project®, and the Disability Visibility book visit https://disabilityvisibilityproject.com/. For the show notes and transcript, visit http://amenabrown.com/herwithamena. Learn more about your ad-choices at https://news.iheart.com/podcast-advertisers

This week we're learning about disability rights and how to be a better ally to the disabled, with activist and consultant Alice Wong. Listen to hear Alice talk about the unique perspectives that disabled people bring to the conversation, what non-disabled people can do to promote and protect equality, and why Crip Camp is essential viewing.In addition to being the Founder and Director of the Disability Visibility Project, she is also the host of the Disability Visibility podcast, and recently published the book Disability Visibility: First-Person Stories From the 21st Century.Have an idea for a future episode? Call us at 347-687-8109 and leave a voicemail, or write to us at upgrade@lifehacker.com. We want to hear from you!See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

This week Farai Chideya dives into how federal judges are central in the fight to protect reproductive health with Alexis McGill Johnson of Planned Parenthood. We break down the steps in creating more inclusive representation with the cofounders of Women of Color for Progress. Also, understanding how students of HBCUs are mobilizing for the upcoming election, and lifetime activist Dolores Huerta reminisces about her advocacy over the years. Correction:  We incorrectly stated that Dolores Huerta was awarded the Medal of Freedom in 2000. She was a 2011 Medal of Freedom recipient; the honor was delivered by President Obama in 2012.Episode Rundown1:11 Alexis McGill Johnson, CEO of Planned Parenthood Action Fund, talks about how the new Supreme Court appointment could impact Americans’ reproductive rights.5:28 How the upcoming election will affect access to healthcare for all Americans. 8:36 Women of Color for Progress cofounders Amanda Farías and Karen Coronel talk about running for local office and motivating more women to represent their communities. 11:27 Farías explains how to take the plunge into politics, even if you have no prior experience. 13:31 Errin Haines details her four-hour journey to cast an early vote.15:13 Haines breaks down voter suppression and voter depression. 17:10 Our SPEAK segment explores the top issues that our listeners are sharing with us.  18:22 Delece Smith-Barrow talks about the importance of this election to students at HBCUs. 22:03 Ruth Umoh dives into how Black business women have been affected by the pandemic. 23:48 Umoh describes how the business and finance community has responded to the call for action after the death of Geroge Floyd.27:47 Our weekly Covid update talks about the record number of coronavirus cases, why more white Americans are getting sick, and how masks are stopping the spread of the virus.31:31 Dr. Ijeoma Nnodim Opara describes a recent encounter with a police officer who was not wearing a mask. 33:18 “I recognized that the environments that we're in right now, politically, socially, culturally, economically as well, and that this will not be about public health. The most important thing was for me to get home safe to my babies right now.” Dr. Nnodim Opara reflecting on her identity and having to weigh the risks of an encounter with police.35:55 Alice Wong, founder and director of the Disability Visibility Project, talks about #CripTheVote and raising awareness for voters with disabilities. 39:25 Wong explains her fear of losing the Affordable Care Act and what it would mean for people with disabilities. 42:55 Dolores Huerta and her legacy of “Si se puede.”46:30 Huerta talks about her history with police violence and why she’d be at the protests happening right now if it wasn’t for Covid-19.47:56 Huerta talks about her experiences on the Playa at Burning Man, and why she thinks it should be a model for society at large.

Language is powerful, and the way we talk about our bodies, our experiences, and disability is no exception. In episode 2, Qudsiya interviews Dr. Sara Acevedo, Assistant Professor of Disability Studies at Miami University in Ohio. A scholar activist, she works at the intersection of Disability Studies in Anthropology, Neurodiversity, and spatial politics, specializing in critical disability studies. As a disabled woman of color, Sara uses a Disability Justice lens in her teaching and research.In Episode 2, Sara and Qudsiya discuss the complex and fluid relationship between language and disability. They cover the differences between "person-first" and "identity-first" language, the history and impact of the word "Crip," the differences between "inclusion" and "access," and so much more.Links and books mentioned in the episode:Sins Invalid, the 10 Principles of Disability JusticeSkin, Tooth, and Bone: The Basis of Movement is Our People, a Disability Justice PrimerCare Work: Dreaming Disability Justice, by Leah Lakshmi Piepzna-SamarasinhaMia Mingus’ blog, Leaving EvidenceAlice Wong’s Disability Visibility Project and bookThe conversation continues on social media. Follow us @downtothestruts on Twitter and Instagram, and join our Facebook discussion group.Transcript available here.

Join Change Catalyst Founder & CEO Melinda Briana Epler with KR Liu, Head of Brand Accessibility at Google, in conversation about how we can make the working environment more inclusive for people with disabilities. We talked about KR Liu's journey to becoming an advocate based on her own story of struggling in the workplace when dealing with hearing loss.In this episode, KR Liu describes:The importance of speaking up and making the Disabled community part of every department of a companyImportant statistics illustrating the representation of the Disabled community in the workplace as well as the Black Disabled communityThe simple actions you can put in place to help to make the Disabled community more visible1 in 4 people experience disability at some point in life, be it permanent, temporary or situational disability.Some of our favorite quotes of our conversation"Every day I have the power to influence someone's life.""50% of the people killed by the police are black and have a disability.""Disability is something we all experience at some point in our lives.”"If anything, we want people to feel empowered by us on what we have been able to achieve. That's really, really important that people understand the contribution that disabled people have made to society."Learn more about KR Liu  at https://www.krliu.com/Additional Resources“Crip Camp” on Netflix: https://www.netflix.com/title/81001496Andrea LaVant's conversation on CripCamp and ADA30 with former President Barack Obama: https://www.rollingstone.com/movies/movie-news/barack-obamas-surprise-visit-crip-camp-ada-30-1034038/“Being Heumann” by Jennifer Heumann: https://www.amazon.com/Being-Heumann-Unrepentant-Disability-Activist/dp/0807019291“Disability Visibility Project” by Alice Wong at: https://disabilityvisibilityproject.com/about/⭑⭑If this is helpful, don't forget to subscribe to our podcast and like this episode!⭑⭑Producer: Juliette RoyProject Manager: Sally MoywaywaFinance & Operations: Renzo SantosDiversity & Inclusion Specialist: Antonia FordCreated by: Melinda Briana EplerFor more about Change Catalyst, and to join us for a live recording, visit changecatalyst.co/allyshipseriesSupport this series: patreon.com/changecatalystsYoutube: youtube.com/c/changecatalystTwitter: twitter.com/changecatalystsFacebook: facebook.com/changecatalystsLinkedIn: linkedin.com/company/changecatalystsSupport the show (http://patreon.com/changecatalysts)

This week, disability activist Alice Wong talks with comedian and journalist W. Kamau Bell. Wong is founding director of the Disability Visibility Project, an online community dedicated to creating and amplifying disability media and culture.  She has edited an anthology of personal essays by contemporary disabled writers to mark the 35th anniversary of the ADA, “Disability Visibility: First-Person Stories from the Twenty-first Century”.  On October 19, 2020, Alice Wong talked about the book with her good friend, comedian and journalist W. Kamau Bell.  The two also spoke about the extra challenges faced by voters during the time of COVID-19, the importance of abled allies advocating for the disabled community, and their shared admiration for Denzel Washington. 

Alice and Alex explore their journeys in the disability community, what they've learned from their disability justice work, and what we can all learn from applying a disability justice lens to organizing. They focus on the power of finding community and the importance of interrogating the popular culture of activism and organizing. Alice shares her journey in activism - her grappling with the label itself, its implications, and what activism as a disabled person looks like for her given her work with the Disability Visibility Project and #CripTheVote. Alex shares how her work as an activist grew from her current role in leading work at ADA25 Advancing leadership and her lessons about the true range of forms that organizing and activism can take. She also reflects on her family, being a first generation American, and the intersections of racism, white supremacy, and ableism in current organizing culture. Together, Alex and Alice explore the realities of intersectional organizing as two disabled women of color, the ableism ingrained in organizing culture traditional mindsets and practices, and how we can all learn from disabled activists and organizers to imagine new forms of organizing toward liberation. Note: Transcripts for every podcast episode can be found on the podcast's website under 'Episodes.' Resources Referenced:  The Disability Visibility Project "Disability Visibility: First-person Stories for the 21st Century" edited by Alice Wong #CripTheVote Blog post, Alice Wong ADA25 Advancing Leadership ADA25 A.L. Fellow Keidra Chaney's The Learned Fangirl ADA25 A.L. Fellow Whitney Hill's Spork! ADA25 A.L. Fellow Michelle Johnson's "Fighting Fiercely" Bios: Alex Perez-Garcia is a social impact leader who believes in the power of personal narrative, civic engagement, and working together to build capacity and infuse equity in our systems. As Associate Director of Development and Communications at ADA25 Advancing Leadership, she is growing this startup nonprofit organization through strategic high-quality fundraising, community outreach, and internal and external content management. Alice Wong (she/her) is a disabled activist, media maker, and consultant. She is the Founder and Director of the Disability Visibility Project® (DVP), an online community dedicated to creating, sharing and amplifying disability media and culture created in 2014. Currently, Alice is the Editor of "Disability Visibility: First-Person Stories from the Twenty-first Century," an anthology of essays by disabled people, available now by Vintage Books (2020).

In this episode we chat with Alice Wong, disability activist, media producer, and a consultant. She is the founder and Project Coordinator of the Disability Visibility Project, a project collecting oral histories of people with disabilities in the United States that is being run in coordination with StoryCorps. The Disability Visibility Project was created on the 25th anniversary of the Americans withDisabilities Act of 1990. As of 2018, the project had collected approximately 140 oral histories. Her new project is an anthology titled, Disability Visibility First Person Stories from the 21st Century. Joining Alice in part 2 of this episode is Dr. Diana Cejas, a physician with a disability and one of the authors in Disability Visibility. Dr. Cejas shares her journey to becoming a person with a disability and how her dual identities as a patient and a physician inform her work with patients. Her essay is titled, Taking charge of my story as a cancer patient at the hospital where I work.

In this episode we chat with Alice Wong, disability activist, media producer, and a consultant. She is the founder and Project Coordinator of the Disability Visibility Project, a project collecting oral histories of people with disabilities in the United States that is being run in coordination with StoryCorps. The Disability Visibility Project was created on the 25th anniversary of the Americans withDisabilities Act of 1990. As of 2018, the project had collected approximately 140 oral histories. Her new project is an anthology titled, Disability Visibility First Person Stories from the 21st Century. Joining Alice in part 2 of this episode is Dr. Diana Cejas, a physician with a disability and one of the authors in Disability Visibility. Dr. Cejas shares her journey to becoming a person with a disability and how her dual identities as a patient and a physician inform her work with patients. Her essay is titled, Taking charge of my story as a cancer patient at the hospital where I work.

How do you educate loved ones about your disability without making them feel like you’re shoving information down their throats? That is this week's question, answered by Alice Wong, founder of the Disability Visibility Project. Alice underscores the connection between disability justice and the Black Lives Matter movement. Episode transcript here: shorturl.at/abxEP

How do you educate loved ones about your disability without making them feel like you’re shoving information down their throats? That is this week's question, answered by Alice Wong, founder of the Disability Visibility Project. Alice underscores the connection between disability justice and the Black Lives Matter movement. Episode transcript here: shorturl.at/abxEP

How do you educate loved ones about your disability without making them feel like you’re shoving information down their throats? That is this week's question, answered by Alice Wong, founder of the Disability Visibility Project. Alice underscores the connection between disability justice and the Black Lives Matter movement. Episode transcript here: shorturl.at/abxEP

How do you educate loved ones about your disability without making them feel like you’re shoving information down their throats? That is this week's question, answered by Alice Wong, founder of the Disability Visibility Project. Alice underscores the connection between disability justice and the Black Lives Matter movement. Episode transcript here: shorturl.at/abxEP

How do you educate loved ones about your disability without making them feel like you’re shoving information down their throats? That is this week's question, answered by Alice Wong, founder of the Disability Visibility Project. Alice underscores the connection between disability justice and the Black Lives Matter movement. Episode transcript here: shorturl.at/abxEP

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong joined us via livestream in conversation with editor Elsa Sjunneson. Wong shared from her recent book, Disability Visibility: First-Person Stories from the Twenty-First Century, a curated anthology of contemporary essays from other prominent disability writers and activists. She gave us a glimpse into the rich complexity of the disability experience, and highlights the passions, talents, and everyday lives of the disability community. Wong invited us to question our own understandings, and look to the future of disability visibility with hope and love. Alice Wong is a disability activist, media maker, and consultant. She is the Founder and Director of the Disability Visibility Project, which aims to amplify media created by people with disabilities, and she has been one of the leading partners in the #CripTheVote campaign. She is also a co-partner on the DisabledWriters.com, #CripLit, and Access Is Love projects. She has been published in the New York Times, Vox, Bitch Media, Teen Vogue, and others. Hugo and Aurora award-winning editor Elsa Sjunneson is a deafblind hurricane in a vintage dress. Her nonfiction editorial work has appeared in Uncanny Magazine and Fireside Magazine. As an author, her work has appeared in CNN Opinion, Tor.com, The Boston Globe, and numerous other venues. In addition to editorial and authorial pursuits, she educates authors on writing disability respectfully. Visit our YouTube page to view ASL and closed captioning. Buy the Book: https://www.elliottbaybook.com/book/9781984899422  Presented by Town Hall Seattle. To become a member or make a donation click here or text TOWN HALL to 44321. 

Episode 153 - Alice Wong. Dan Sterenchuk and Tommy Estlund are honored to have as our guest, Alice Wong. Episode Transcript provided by Chelsea Moore available here: https://bit.ly/Curiosity-Hour-Alice_Wong Alice Wong is a disabled activist, media maker, and consultant. She is the Founder and Director of the Disability Visibility Project®, an online community dedicated to creating, sharing and amplifying disability media and culture created in 2014. Currently, Alice is the Editor of Disability Visibility: First-Person Stories from the Twenty-first Century, an anthology of essays by disabled people, by Vintage Books: https://disabilityvisibilityproject.com/book/ Website: http://DisabilityVisibilityProject.com Twitter: https://twitter.com/DisVisibility Podcast: https://disabilityvisibilityproject.com/podcast-2/ Patreon: patreon.com/DVP Photo credit: Eddie Hernandez Photography Special thanks to Chelsea Moore for providing transcription for this episode! More information about her transcription services here: https://bit.ly/Chelsea_Moore Note: Guests create their own bio description for each episode. The Curiosity Hour Podcast is hosted and produced by Dan Sterenchuk and Tommy Estlund. Please visit our website for more information: thecuriosityhourpodcast.com The Curiosity Hour Podcast is listener supported! To donate, click here: thecuriosityhourpodcast.com/donate/ Please visit this page for information where you can listen to our podcast: thecuriosityhourpodcast.com/listen/ Disclaimers: The Curiosity Hour Podcast may contain content not suitable for all audiences. Listener discretion advised. The views and opinions expressed by the guests on this podcast are solely those of the guest(s). These views and opinions do not necessarily represent those of The Curiosity Hour Podcast. This podcast may contain explicit language.

Stacey Park Milbern was an expert at organizing people. A self-identifying queer disabled woman of color, Stacey organized to help her move from North Carolina to the Bay Area so that she could live independently as a disabled person. Stacey was a well known leader within the disability justice movement. And her activism extended beyond people living with disabilities and to other communities that are often excluded — people of color, queer folks, and people living on the streets. She passed away this month at the age of 33. Guest: Andraéa LaVant, Stacey’s friend and co-impact producer on the new Netflix documentary Crip Camp Tap the links to see conversations with Stacey from Sins Invalid, Disability Visibility Project, and the Barnard Center for Research On Women. For a full transcript of this episode, visit the web post here.

Medical Humanities Editor Brandy Schillace speaks to Alice Wong, a disabled activist, media maker, and consultant based in San Francisco. She is the Founder and Director of the Disability Visibility Project® and speaks about increasing disability access in the face of coronavirus pandemic. Read the blog post and the transcript of this podcast: https://blogs.bmj.com/medical-humanities/2020/04/30/disability-visibility-and-the-covid-19-crisis. The Disability Visibility Project link: https://disabilityvisibilityproject.com/

Medical Humanities Editor Brandy Schillace speaks to Alice Wong, a disabled activist, media maker, and consultant based in San Francisco. She is the Founder and Director of the Disability Visibility Project® and speaks about increasing disability access in the face of coronavirus pandemic. Read the blog post and the transcript of this podcast: https://blogs.bmj.com/medical-humanities/2020/04/30/disability-visibility-and-the-covid-19-crisis. The Disability Visibility Project link: https://disabilityvisibilityproject.com/

A Better Table on the Sprudge Podcast Network is hosted by Sprudgie Award-winning journalist, author and community organizer Umeko Motoyoshi. This show is a journalistic deep dive into the topics that matter in today's coffee world, from disability access to coffee producer rights at origin to labor organizing in the modern coffee workforce, and much, much more. Motoyoshi's fearless journalism isn't afraid to ask big questions: who is coffee for, what ways can we challenge existing systems, and how do we come together to create a better table for all. In the first episode of A Better Table, Umeko Motoyoshi interviews disability rights activist and author Alice Wong (Disability Visibility). Alice Wong is an award-winning disability awareness activist, consultant, and media producer based in San Francisco, and was appointed to the National Council on Disability by President Obama. In 2015, Wong made history as the first person to visit The White House via a telepresence robot. The Disability Visibility Project has collected over one hundred and forty oral histories in collaboration with the nonprofit organization StoryCorps.  While this interview was recorded before the COVID-19 crisis disrupted cafes across the country, the topic of accessibility remains as relevant as ever; cafes are slowly starting to reopen under new restrictions, and it's important to consider the access barriers of new protocols. Our pursuit of a "new normal" for cafe operations in the coming months and years must hold space for every person, a notion for which Alice Wong is a powerful advocate. Full transcript available here. This episode of A Better Table is sponsored by Baratza, Oatly, and Urnex Brands. 

This week friend of the pod Alice Wong (@SFDirewolf) joins Ana Marie Cox (@anamariecox) to talk about what it means to be a part of the disabled community during a pandemic. Spoiler: the world seems to get a little too cavalier about whether or not you deserve to live anymore. They talk about the grassroots activism being done within the community, and what able bodied folks can do to listen and be better. Remember, we are staying inside and quarantining for the good of everyone, not just those we deem worthy of surviving capitalism. Learn more about Alice’s work with the Disability Visibility Project here. Read more about the fight for Medicaid here. Thanks to our sponsors! With their powerful matching technology, ZipRecruiter scans thousands of resumes to find people with the right skills and experience for your job — and actively invites them to apply. To try ZipRecruiter FOR FREE, go to ZipRecruiter.com/friends!  Le Tote is the fashion RENTAL service where you can choose the clothes and accessories you want to wear. Visit LETOTE.COM to and use code FRIENDS1 to get 40% off today. BetterHelp online counseling is there for you. Get help on your own time and at your own pace. You can schedule secure video or phone sessions plus chat and text with your therapist. Get 10% off your first month with discount code FRIENDS. Go to BetterHelp.com/FRIENDS

In this episode of the Coffee Sprudgecast Jordan Michelman and Zachary Carlsen read the winners of the 2019 Sprudgie Awards Presented By Pacific Barista Series. This episode of the Coffee Sprudgecast is brought to you by Odeko. Notable Roaster Winner: Onyx Coffee Lab (Rogers, AR) Honoree: Dune Coffee (Santa Barbara, California) Finalists: Dear Green Coffee Roasters (Glasgow, Scotland), Mother Tongue Coffee Roasters (Oakland, California), Hola Coffee (Madrid, ESP), YES PLZ WEEKLY (Los Angeles, California), Market Lane (Melbourne, AUS), Ditta Artigianale (Florence, IT). Best New Cafe Winner: Substance Cafe (Paris) Honoree: Formative Coffee (London) Finalists: Intelligentsia Coffee (Austin), Canary Coffee Bar (Milwaukee), The Coffee Movement (San Francisco), Prototype Coffee (Vancouver, BC), Wrecking Ball Coffee (Berkeley, CA), The Crown: Royal Coffee Lab & Tasting Room (Oakland). Sustainable Cafe Winner: 3FE (Dublin, Ireland) Honoree: Counter Culture Coffee Training Centers (United States) Finalists: Oddly Correct (Kansas City, Missouri), Isla Coffee (Berlin), Bar Nine (Los Angeles), Miss Margaret (Preston, Victoria), Horizon Line Coffee (Des Moines, Iowa), Crema Coffee (Nashville). Best New Product Winner: La Marzocco KB90 Honoree: AeroPress Go by AeroPress Finalists: Carter Everywhere Mug by Fellow Products, FrankOne Brewer, Acaia Pearl S, Sanremo Brave, Wilfa Uniform Grinder, Ember Mug². Best Coffee Video/Film Winner:  James Hoffmann on YouTube Honoree: Chris Baca on YouTube Finalists: Seattle Coffee Gear (YouTube), “Breaking The Crust” (Stumptown Coffee), “Wax & Gold” (Stumptown Coffee), “Coffee Farmers Hopeful For Their Dying Crops” (National Geographic), “Coffee” from SHOP: A Pop Opera by Jack Stauber (Adult Swim). Best Coffee Writing Winner: Umeko Motoyoshi, “The @WastingCoffee Guide To Not Wasting Coffee” Honoree: Anonymous, Vancouver Coffee Snob Finalists: Amanda Mull for “The Rise of Coffee Shaming” (The Atlantic), Jonathan Gagné (Coffee Ad Astra), Arielle Rebekah Gordon (Trans & Caffeinated), Brian Williams (Brian’s Coffee Spot), RJ Joseph (The Knockbox), Ashley Rodriguez (Boss Barista). Notable Coffee Producer Winner: Juan Peña, Hacienda La Papaya (Ecuador) Honoree: Damian Chavez (Honduras) Finalists: Rosalba Cifuentes Tovia (Mexico), La Palma y El Tucan (Colombia), Long Miles Coffee Project (Burundi), Tesfaye Bekele (Ethiopia), Virgelina Perdomo (Colombia), Don Fabio Caballero (Honduras). Best Coffee Magazine Winner: Standart (Slovakia) Honoree: Roast Magazine (USA) Finalists: 25 Magazine (USA), Coffee People Zine (USA), Solo Magazine (Spain), The Coffee Magazine (South Africa), Drift (USA), Revista Espresso (Brazil). Best Design Packaging Winner: Coffee Collective (Copenhagen, Denmark) Honoree: Hard Beans Coffee Roasters (Opole, Poland) Finalists: Camber Coffee Artists Series (Bellingham, WA), Fjord Coffee Roasters (Berlin, Germany), Intelligentsia Coffee (Chicago, IL), Joe Coffee (New York City, NY), Talormade Coffee (Oslo, Norway), YEZ PLZ WEEKLY (Los Angeles, CA). Best Coffee Podcast Winner: Cat & Cloud Honoree: Boss Barista Finalists: Sourceress, Keys to the Shop, La Crema: Podcast de Cafe, Craft Your Own Coffee Podcast, Filter Stories, The Specialty Coffee Association Podcast. Best Social Media Winner: @50percentarabica Honoree:@fellowproducts Finalists: @dayglowcoffee, @ditriech, @wastingcoffee, @getchusomegear, @nicely85, @shitfrommykitchen. Outstanding Achievement in the Field of Excellence Winner: Jooyeon Jeon, 2019 World Barista Champion Honoree: Coffee At Large Finalists: Alice Wong of Disability Visibility Project, Chris McAuley of Getchusomegear, Peter Giuliano of Coffee Science Foundation and SCA, T. Ben Fischer of Glitter Cat Barista Boot Camp, Virginia Bauman of Cuties and Go Get Em Tiger, Margaret Nyamumbo of Kahawa 1893. The 11h Annual Sprudgie Awards are presented by Pacific Barista Series. See all past winners of the Sprudgie Awards.

Join us in talking to disability activist and media maker Alice Wong about building media that values accessibility, disability as a political and socio-cultural identity, and her journey in founding the Disability Visibility Project. We also reflect on the continuing work of Access is Love, a campaign that aims to help build a world where accessibility is understood as an act of love instead of a burden or an afterthought. Access full resources, notes, and the transcript at http://www.healingjustice.org/podcast/46 ----------- TRANSCRIPT LAUNCH: In the next episode, we share a conversation with members of our volunteer Access Team, reflecting on the labor and lessons of their work to share our complete transcript collection and the continuing work to build access here at the podcast. Find that episode here & learn more about our access commitments here at the podcast. ----------- MORE ABOUT OUR GUEST: Alice Wong is a disability activist, media maker, and consultant. She is the Founder and Director of the Disability Visibility Project (DVP), an online community created in 2014, dedicated to creating, sharing and amplifying disability media and culture. Alice is also a co-partner in four projects: DisabledWriters.com, a resource to help editors connect with disabled writers and journalists, #CripLit, a series of Twitter chats for disabled writers with novelist Nicola Griffith, #CripTheVote, a nonpartisan online movement encouraging the political participation of disabled people with co-partners Andrew Pulrang and Gregg Beratan, and Access Is Love with co-partners Mia Mingus and Sandy Ho, a campaign that aims to help build a world where accessibility is understood as an act of love instead of a burden or an afterthought. Find out more about these at the links below: Disability Visibility Project (DVP): https://disabilityvisibilityproject.com/ DVP Podcast: https://disabilityvisibilityproject.com/podcast-2/ Patreon: https://www.patreon.com/DVP Twitter: @SFdirewolf @DisVisibility Instagram: @disability_visibility DisabledWriters.com: https://disabledwriters.com/ #CripLit: https://twitter.com/search?f=tweets&vertical=default&q=%23CripLit&src=typd #CripTheVote: http://cripthevote.blogspot.com/ Access Is Love: https://www.disabilityintersectionalitysummit.com/access-is-love Access is Love online store: https://www.disabilityintersectionalitysummit.com/onlinestore ----------- JOIN THE CONVERSATION: Sign up for our email list to receive a free healing justice zine & resources for your work and wellbeing. Sign up here: http://www.healingjustice.org Join our virtual community at http://www.patreon.com/healingjustice  Talk with us on social media: Instagram @healingjustice, Healing Justice Podcast on Facebook, & @hjpodcast on Twitter  ----------- Join us for Book Club! 

Amena talks with disabled activist, podcaster, and founder and director of the Disability Visibility Project®, Alice Wong. Alice shares how an early love for reading informed her journey as a creative and as an activist. Amena and Alice discuss why it’s important to preserve disabled history and why it’s necessary for the disabled community to … Continue reading Episode 32: Creating Accessibility and Online Community with Alice Wong →

Alice Wong shares about her mission and work with the Disability Visibility Project. Alice discusses how to be a true ally to disabled persons, what makes for a genuinely “healthy” life, and why disabled people have to be ingenious to survive in a world that is a hostile environment for them. (Intro: The Green Ninja)

Alice Wong joins us today to talk about the straw ban, ableism in public spaces, and performative activism in a capitalist society. Alice is the founder and director of the Disability Visibility Project, and is an disabled-rights activist based in San Francisco. Alice talks about the rhetoric of the straw ban, how disabled voices are often erased, and how she fell into activism and storytelling. If you have any questions, thoughts, or are confused as to how the straw ban hurts and erases the stories of disabled folks, you have to listen to this episode.

During Asian Pacific American Heritage Month, Deepa talks with Alice Wong, founder of the Disability Visibility Project, about acknowledging & dismantling ableism in social justice movements.

During Asian Pacific American Heritage Month, Deepa talks with Alice Wong, founder of the Disability Visibility Project, about acknowledging & dismantling ableism in social justice movements.

It's a New Year and time to move forward Last episode of What's The Matter With Me? Episode 27 wasn't very focused and I could have explained myself and foregrounded what is going on with my Multiple Sclerosis disability more effectively.  The title of this podcast is What's The Matter With Me? after all. I resolve to run things a little more by-the-book this year.  For this episode, at least. Cafe Oto Crowd outside Cafe Oto in Dalston, East London Last episode,  I reviewed Marshall Allen's Volcano Quartet CD Volcano Swing, a live performance at the BBC in London, where he was in town for three nights at Cafe Oto.  Listener Chris lives there and wrote in to let me know about the location, in Dalston, East London, and some live shows he had seen there.  It sounds groovy and I hope to check it out myself someday. Never give up I can have a bad episode.  A terrible episode.  Ghastly.  But I won't give up or cede an inch in any direction. I discussed in Episode 25 as well as Episode 4 that I won't give up.  The pressure to give in and let go of the rope and drown in my disability is extreme.  Multiple sclerosis is suffocating and pervasive.  I have been dumped and it felt very bad -- I bet that anybody having a hard time with something feels the same. Tapering Medication I called my neurologist to request help with tapering down Gabapentin, they said I'd get a call-back in 24-48 hours, but they called me back in about an hour.  I was concerned because I had adjusting my own dosage without any guidance, which is bad practice.  The nurse told me that my dosages had been fine, and outlined the boundaries for my pain meds.  My dosage is back to normal, and I am not in pain. No-tie Shoelaces and shoelace replacements I've bit the bullet and decided to get rid of my laced shoes.  I've got some no-tie shoelaces which turn my shoe into slip-ons.  They're working OK but my shoe feels like it might fall off.  I'm glad to be done with shoelaces because they came untied and I wouldn't retie them.  I've got some shoelace replacements in the mail.  I'll go over them in an upcoming episode. Disability Visibility Project Disabilty Visibility Project Alice Wong icon Disability Visibility Project is a platform for creating, sharing, and amplifying disabled voices created by disabled activist Alice Wong.  I said in Episode 25 that in 2018 I would bring new voices to the podcast and the Disability Visibility Project is part of that effort. Interrupting the Uninterruptible I hosted the Blues Collective with Jack Tar from 10am to 2pm on KFJC yesterday,.  For the first hour, Jack plays the music and runs the mixing board while I sit below in the interview area.  At 11, we switch places, and I run the board and he is below on the mic.  We do it again at noon and at one. While it was my time to run the board, I played the same song twice.  I put my foot on the wrong place and unplugged whata the engineer told me was the "Uninterruptible Power Supply" -- it turned off the CD players, the lights -- pretty much the entire station!  I ferlt like I lacked focus or was fatigued, and I messed up the show. Everybody feels that way sometimes.  "Uninterruptible"?  All I had to do was unplug it. New Year's Resolution Talk less, act more.  This podcast is a bit of both.  Don't think too hard about it.

Alice Wong, co-creator of #CriptheVote and creator of the Disability Visibility Project, shares her journey into self-care. She shares how her journey into self-care began as she realized that her body could not handle the exertion she was demanding from it. We discuss how she learned to set expectations that made sense for her within her unique strengths and limitations. Alice discusses the importance of saying, "no, thank you" to maintaining self-care. She remind us that if people want our free labor or can't respect boundaries then, "that's too damn bad". Her insight into how our identities play into these expectations was profound. Finally, we discuss the journey into identifying as disabled.

Alice Wong with the Disability Visibility ProjectTonight, during Women's History Month, we're exploring disability: We talk with Alice Wong, founder of the Disability Visibility Project, and hear some excerpts from its tremendous collection of oral histories – stories told from the lived experiences of folks from the disability community. We talk with Carina Ho, a dancer paralyzed from her chest down, who continues dancing in her wheelchair for AXIS Dance Company. And we hear from Claire Light, a writer with an invisible disability: chronic fatigue syndrome. Tonight's show includes guest producers Geraldine Ah-Sue and Lindsay Oda. Community Alert: Last week, 7 Minnesotan Khmer families, who were detained by Immigration and Customs Enforcement (ICE) this past summer, were abruptly transferred to a detention center in Arizona and are scheduled to be deported to Cambodia at the end of this month. One of them has a Stay of Removal and others have pending applications. They are currently held at the Florence State Processing Center in Arizona and could be flown away by the end of the week. Please join us on Thursday 3/23 at noon to collectively call our congress person and senators to DEMAND that these individuals are release, as well as immediately flown back to Minnesota for due process. We also want to demand that our senators and congress person haul all deportation in ALL community. Here is a script that you can use while calling: https://tinyurl.com/releasemn8 Find your US Senators: https://www.senate.gov/senators/contact/ Congressional District Reps: http://www.house.gov/representatives/find/ While you are calling on Thursday, please use the hashtag #releaseMN8 and #not1more Community Calendar On Saturday, the New Parish in Oakland will be hosting SOFT FADE – A Queer Pop-Up Barbershop Fundraiser for Trans Youth. They'll be dancing and cutting hair all afternoon, 3 to 7 p.m! This is a 21+ event. All proceeds go to Trans Lifeline and The Time is Now: LGBTQ Youth Summit. So get your fade on and support our queer family near and far! The post APEX Express Women and Disability appeared first on KPFA.

Season 1, Episode 14 — 10 November 2016 About this episode We talk with Alice Wong and Andrew Pulrang about their numerous projects, most importantly #CripTheVote and the Disability Visibility Project. We discuss the election, the affordances of online collaboration and activism, intersectionality and disability, and the importance of culture, not just politics. Be sure to check out their #WhatsNext post-election #CripTheVote twitter chat on 10 November 2016, starting at 7:00 PM Eastern. Visit the Disability Visibility Project page for the event or the twitter feed for the hashtag to find out more. About the presenters Alice Wong is a sociologist, research consultant, and disability activist based in San Francisco, California. Her areas of interest are accessible healthcare for people with disabilities, Medicaid policies and programs, advocacy-based storytelling, and social media. Currently, she is the Founder and Project Coordinator for the Disability Visibility Project (DVP), a community partnership with StoryCorps and an online community dedicated to recording, amplifying, and sharing disability stories and culture. Partnering with Andrew Pulrang and Gregg Beratan, Alice is a co-partner of an online campaign called #CripTheVote encouraging conversations about disability issues during the 2016 Presidential election. You can find her on Twitter at @SFdirewolf. Andrew Pulrang started working at the North Country Center for Independence, a Center for Independent Living in Plattsburgh, New York while in college, rising to serve as the Executive Director from 1998 until 2012. Seeking to explore disability issues in a different way, Andrew started Disability Thinking. You can find him on twitter at @AndrewPulrang. Donald Taylor is the Membership Manager at TASH and the producer of Amplified. Transcript Announcer: You're listening to TASH Amplified a podcast that seeks to transform research and experience concerning inclusion and equity for people with disabilities into solutions people can use in their everyday lives. Today we are talking with Alice Wong and Andrew Pulrang about their numerous projects, most importantly #CripTheVote and the Disability Visibility Project. We discuss the election, the affordances of online collaboration and activism, intersectionality and disability, and the importance of culture, not just politics. Concerned about the implications of the election outcome for people with disabilities? Wondering where we go from here? #CripTheVote will be hosting an election discussion as one of their regular twitter chats on Thursday, November 10th 2016, starting at 7:00 PM Eastern. For more on how to participate, search for #CripTheVote on twitter or go to facebook.com/CripTheVote/. Complete transcript forthcoming Announcer: You've been listening to TASH Amplified. For more about the series, including show notes, links to articles discussed, a complete transcript and a schedule of episodes, visit tash.org/amplified. You can subscribe through iTunes or your favorite Android podcast app to have the series delivered automatically to your device so you never miss an episode. If you enjoyed today's episode, please share it with your friends and on your social networks. Today we talked with Alice Wong and Andrew Pulrang about #CripTheVote and the Disability Visibility Project. You can find Alice Wong on twitter at @SFdirewolf. […] The post #CripTheVote and Online Disability Activism appeared first on Tash.org.

Season 1, Episode 14 — 10 November 2016 About this episode We talk with Alice Wong and Andrew Pulrang about their numerous projects, most importantly #CripTheVote and the Disability Visibility Project. We discuss the election, the affordances of online collaboration and activism, intersectionality and disability, and the importance of culture, not just politics. Be sure to check out their #WhatsNext post-election #CripTheVote twitter chat on 10 November 2016, starting at 7:00 PM Eastern. Visit the Disability Visibility Project page for the event or the twitter feed for the hashtag to find out more. About the presenters Alice Wong is a sociologist, research consultant, and disability activist based in San Francisco, California. Her areas of interest are accessible healthcare for people with disabilities, Medicaid policies and programs, advocacy-based storytelling, and social media. Currently, she is the Founder and Project Coordinator for the Disability Visibility Project (DVP), a community partnership with StoryCorps and an online community dedicated to recording, amplifying, and sharing disability stories and culture. Partnering with Andrew Pulrang and Gregg Beratan, Alice is a co-partner of an online campaign called #CripTheVote encouraging conversations about disability issues during the 2016 Presidential election. You can find her on Twitter at @SFdirewolf. Andrew Pulrang started working at the North Country Center for Independence, a Center for Independent Living in Plattsburgh, New York while in college, rising to serve as the Executive Director from 1998 until 2012. Seeking to explore disability issues in a different way, Andrew started Disability Thinking. You can find him on twitter at @AndrewPulrang. Donald Taylor is the Membership Manager at TASH and the producer of Amplified. Transcript Announcer: You’re listening to TASH Amplified a podcast that seeks to transform research and experience concerning inclusion and equity for people with disabilities into solutions people can use in their everyday lives. Today we are talking with Alice Wong and Andrew Pulrang about their numerous projects, most importantly #CripTheVote and the Disability Visibility Project. We discuss the election, the affordances of online collaboration and activism, intersectionality and disability, and the importance of culture, not just politics. Concerned about the implications of the election outcome for people with disabilities? Wondering where we go from here? #CripTheVote will be hosting an election discussion as one of their regular twitter chats on Thursday, November 10th 2016, starting at 7:00 PM Eastern. For more on how to participate, search for #CripTheVote on twitter or go to facebook.com/CripTheVote/. Complete transcript forthcoming Announcer: You’ve been listening to TASH Amplified. For more about the series, including show notes, links to articles discussed, a complete transcript and a schedule of episodes, visit tash.org/amplified. You can subscribe through iTunes or your favorite Android podcast app to have the series delivered automatically to your device so you never miss an episode. If you enjoyed today’s episode, please share it with your friends and on your social networks. Today we talked with Alice Wong and Andrew Pulrang about #CripTheVote and the Disability Visibility Project. You can find Alice Wong on twitter at @SFdirewolf. […] The post #CripTheVote and Online Disability Activism appeared first on Tash.org.

Alice Wong A spirited discussion of #CripTheVote,  (an online non-partisan campaign about voting and disability issues), the Disability Visibility Project and media for disabled people.  We talk to disability mover and shaker, Alice Wong.     Alice Wong is the founder and Project Coordinator of the Disability Visibility Project, a project collecting oral histories of people with disabilities in the United States that is being run in coordination with StoryCorps.    Alice Wong also serves as an advisory board member for APIDC, Asians and Pacific Islanders with Disabilities of California.     Wong was a Presidential appointee to the National Council on Disability an independent federal agency which advises the President, Congress, and other federal agencies on disability policies, programs, and practices.  In 2015, Wong attended the reception at the White House for the 25th anniversary of the Americans With Disabilities Act via telepresence robot. She was the first person to visit the White House and the President by robot presence. Adrienne Lauby produces and hosts. The post Alice Wong, Disability Media Maker appeared first on KPFA.

Alice Wong, MS, is a Staff Research Associate at the Department of Social and Behavioral Sciences, UCSF. Alice works on various research projects for the Community Living Policy Center, a Rehabilitation Research and… Continue reading →