Podcast appearances and mentions of jill woodworth

When Peloton's stock debuted in 2019, CFO Jill Woodworth believed the playbook was air‑tight. She had shifted fiscal calendars, re‑segmented reporting and shaped statements that “tell a story,” she tells us. Then COVID hit. Orders “flew nine‑fold overnight,” marketing was switched off, and customer focus narrowed to a single metric: getting bikes from order to doorstep. Wait times ballooned to “four or five months,” but earlier bets—a vertically integrated Taiwanese factory and Peloton‑owned delivery crews—proved “fortuitous,” enabling a sprint to drive delivery toward one week. When demand fell just as quickly, Woodworth slashed the bike's price and led a restructuring that cut “$800 million of costs,” announcing it days after the board replaced the CEO. The lesson, she says, is clear: even elegant models need room for the unimaginable.That conviction now guides her first months at Prenuvo, where a patient can slip into an MRI bore and, under an hour later, leave with a radiologist‑written report on every organ and joint, Woodworth tells us. She is “learning the business” alongside technology, AI and clinical teams, convinced the company holds “so many different ways to grow,” including a new biomarker offering. Finance remains small yet “mighty,” but she will embed analysts so thoroughly that the head of clinical practice “doesn't want to be in a meeting without” them. Acting as co‑pilot to the CEO, she intends to safeguard a balance sheet that grants “every available option” for raising capital—ensuring, this time, finance anticipates both the surge and the calm that follow ahead.

Building a powerhouse advocacy org for young adults with chronic conditions, Sneha Dave shares her path & vision: skill building, peer support, events, policy. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Introducing Sneha Dave 00:57 Podcast intro 02:04 Health is fragile 03:01 Transition from pediatric to adult medical care 04:47 Transition in agency, decision making 06:28 Transition from navel-gazing to community focus 08:39 Building community - Generation Patient 10:21 Managing yourself while advocating 12:54 Yikes, it's a business, too 15:31 Scope - Higher education 18:35 Scope - Peer support 19:33 Scope – Events 21:21 Scope – policy 23:43 Policy - FDA User Fee Agreements 25:22 Policy - Direct-to-consumer advertising 26:47 Policy - State-based drug pricing 27:47 Crohn's and colitis young adults' network 28:18 Patients launching research 29:44 The challenge and benefit of keeping your ear to the ground 38:00 Reflection 41:48 Podcast outro 42:47 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Janice Tufte, Robin Newhouse, Aaron Carroll, Sara Lorraine Snyder, Morgan Gleason, Marlajan Wexler, Fatima Muhammed Ighile, Lauren Reimer-Etheridge, Mallory Smith, Jill Woodworth, James Harrison Links Generation Patient, Empowering Young Adults with Chronic Medical Disabilities A New Generation in the Fight for Fair Drug Prices Inflammatory Bowel Diseases Camp Oasis, a camp for kids with Crohn's and colitis Ehlers Danlos Syndromes Postural orthostatic tachycardia syndrome Helmsley Charitable Trust PDUFA prescription direct user fee agreements 2022 PCORI Annual meeting ICER's Midwest CPAC Midwest Comparative Effectiveness Public Advisory Council Aaron Carroll's Incidental Economist Janice Tufte of Hassanah Consulting Related podcasts https://health-hats.com/ya_transition/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.

Welcome to Episode 86 of Pelo Buddy TV, an unofficial Peloton podcast & Peloton news show. This week we cover the following topics: Member previews have started on Fridays at the NYC & London studios. Peloton has shared videos with instructors giving tours of the studios. Once the studios fully opens later this summer, members will be in classes Friday-Sunday. Peloton is inviting people to sign up to ride along to live classes in showrooms on Fridays. The “Just Work Out” feature has rolled out for all iPhone users – “Stay Tuned” for Android. There is a new “Home” tab that looks more like the bike & tread interface for the website. The majority of the instructors were in New York City 2 weeks ago for an instructor meetup. Time.com has an in-depth look at Robin, Cody, Ally, Emma, and Alex and some of their sponsorship deals. Selena Samuela shared in a class 2 weeks ago that she is pregnant. Peloton has several live & on-demand classes for Father's Day this Sunday. The PSNY Studio will be closed Monday for Juneteenth, and there are several Juneteenth classes over the weekend. On Wednesday, 6 different Barbra Streisand classes took place. Robin Arzon hinted that there is a Wu Tang Clan artist series coming up soon. Peloton has named Liz Coddington as their new CFO as Jill Woodworth is stepping down. Yony Feng, who was Peloton's CTO and an original co-founder, quietly left the company in March. It was reported that Peloton is looking to sell their US factory (which was never finished) for $85 million. PopSugar has an interview featuring several of the coaches. Cody Rigsby talks about therapy & self-care with WonderMind. Aditi Shah was featured on the cover of Seema. Ally Love took a Harvard course. Tunde Oyeneyin's book SPEAK was featured on Amazon's list of “Best Books of the Year So Far.” Robin Arzon announced “Strong Baby”, her second children's book. Robin also has a new collaboration with Diff glasses. Chelsea Jackson Roberts is teaching a yoga class in Times Square. Happy Birthday Rad Lopez, Cody Rigsby, and Joslyn Thompson Rule. Interview with Jules Katharina sharing her experience riding in the Peloton London Studios. John & Amanda share community members', and their own, class picks of the week. You can find links to full articles on each of these topics from the episode page here: https://www.pelobuddy.com/pelo-buddy-tv-episode-86/ The show is also available via YouTube: https://www.youtube.com/c/PeloBuddy This episode is hosted by Amanda Segal (#Seglo3) and John Prewitt (#Kenny_Bania).

John Mills joins us to recap Homecoming. Aditi Shah went to the White House for AAPI month. Builtin.com spotlights Emma Lovewell. Becs Gentry was in London doing something secret at the studio. Kendall Toole was at Kendra Scott's Aloha event. Ally Love is one of Modern Luxury's Top 100 Social Media Creators. Slash Film mentions Netflix's upcoming show with Ally Love. Peloton is looking for a loan and people want in. People are having trouble getting "Lil Guy Front & Back" to light up for upper body. Peloton now has badges for private companies. Peloton memberships are a perk for House Staffers...for the moment. CFO Jill Woodworth sells some of her Peloton stock. Hyatt is testing private gyms with Pelotons. Peloton is partnering with The Steve Fund and IPSO. Peloton and iFit end their lawsuit. CEO of Xponential Fitness still thinks Peloton is a fad. Ben & Leanne partner up with Olympic Gold Medalists Laura & Jason Kenny for Ride To Gold. The latest artist series spotlights Dear Evan Hansen. Birthdays - Christian Vande Velde (5/22) All this plus our interview with Peter Shankman! Love the show? Subscribe, rate, review, and share! Here's How » Join The Clip Out community today: theclipout.com The Clip Out Facebook The Clip Out Twitter The Clip Out Instagram

John Mills joins us to recap Homecoming. Aditi Shah went to the White House for AAPI month. Builtin.com spotlights Emma Lovewell. Becs Gentry was in London doing something secret at the studio. Kendall Toole was at Kendra Scott's Aloha event. Ally Love is one of Modern Luxury's Top 100 Social Media Creators. Slash Film mentions Netflix's upcoming show with Ally Love. Peloton is looking for a loan and people want in. People are having trouble getting "Lil Guy Front & Back" to light up for upper body. Peloton now has badges for private companies. Peloton memberships are a perk for House Staffers...for the moment. CFO Jill Woodworth sells some of her Peloton stock. Hyatt is testing private gyms with Pelotons. Peloton is partnering with The Steve Fund and IPSO. Peloton and iFit end their lawsuit. CEO of Xponential Fitness still thinks Peloton is a fad. Ben & Leanne partner up with Olympic Gold Medalists Laura & Jason Kenny for Ride To Gold. The latest artist series spotlights Dear Evan Hansen. Birthdays - Christian Vande Velde (5/22) All this plus our interview with Peter Shankman!Love the show? Subscribe, rate, review, and share!Here's How »Join The Clip Out community today: theclipout.com The Clip Out Facebook The Clip Out Twitter The Clip Out Instagram See omnystudio.com/listener for privacy information.

I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided to invite her on the podcast to discuss and was quite impressed with what I learned, and the potential of this new tool, X39 patches. Linsey is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below. If interested in learning more, you can reach out to Linsey at linsey@newview.org by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at pjlacy6@gmail.com or order at https://lifewave.com/jwoodworth Here are a few links with some scientific info~http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/ timestamps:1-2:18 Introduction2:18~Linsey's story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she's still here. She considers this a gift from her sister.5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here5:57~Linsey's sister is still with her6:32~Start of discussion on X39 patches which support the body's natural systems7:23~the body is brilliant! We can support it in the way it wants to heal7:45~FDA glitch at beginning of the pandemic, Linsey could not use regular tools such as the Beamer and was led to X39 patches8:06~X39 patches are a frequency device that activates the body's stem cells.8:37~A discussion of exactly what stem cell therapy is, what's involved, the expense, often making it inaccessible and usually used as a last-ditch effort when all else has failed9:53~further explanation of the patch, non-transdermal, made of amino acids and salt crystals, activates different reactions In the body10:36~the science is putting frequencies on the skin that cause other reactions leading to doing some healing11:04~David Schmidt is a scientist who was hired by the Navy to develop a patch for Navy Seals to replace amphetamines12:02~Linsey uses a lot of patches now she has all her grandchildren living with her~more patches have been developed12:24~David Schmidt brought this technology to a friend who was a coach of UCLA swimming, he's been developing and working on it ever since. Different patches are all based on the frequency13:15~X39 patch is the holy grail -activates GHK Copper Peptides that decline with age14:10~It's just actually about age reversal, have had a 70-year-old test with the body of a 50-year-old15:00~Helps with all kinds of degenerative diseases, many testimonials, MS, Parkinson's16:17~comparison of different frequency devices, AO Scan, Beamer, all are wonderful and if possible used right now to get through these times when we are bombarded with energies, 5G, EMF…17:20~Linsey had an autoimmune disorder, 15-20 years ago, had to quit her job, “3-year retreat”, trusted spirit, found Kangen water, another healing modality which was expensive but a good investment as she was able to heal.20:29~Our healthcare systems are frustrating, organ-based, siloed, going from one drug to the next, Band-Aid instead of getting at the deeper reason for illness, no quality of life22:06~Doctors educated at medical schools funded by big pharma and are taught nothing in regards to energy even though they use technology like MRIs which could be used in healing23:18 Bruce Lipton~Placebo effect24:00~Potential for special needs communities is huge with these patches, also for parents and caregivers24:21~Only restriction is not to use the patches during chemotherapy as it will detox the chemo25:05 If the patch effect is too strong, take it off for a few hours. Linsey's experience with retracing26:36~You won't want to stop, you will see a decrease in results if you do not continue use, Linsey is very upfront about this. This is an out-of-the-box business paradigm and opportunity!

I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided to invite her on the podcast to discuss and was quite impressed with what I learned, and the potential of this new tool, X39 patches. Linsey is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below. If interested in learning more, you can reach out to Linsey at linsey@newview.org by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at pjlacy6@gmail.com or order at https://lifewave.com/jwoodworth Here are a few links with some scientific info~ http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/ https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/ timestamps: 1-2:18 Introduction 2:18~Linsey's story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer 3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system 3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she's still here. She considers this a gift from her sister. 5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here 5:57~Linsey's sister is still with her 6:32~Start of discussion on X39 patches which support the body's natural systems 7:23~the body is brilliant! We can support it in the way it wants to heal 7:45~FDA glitch at beginning of the pandemic, Linsey could not use regular tools such as the Beamer and was led to X39 patches 8:06~X39 patches are a frequency device that activates the body's stem cells. 8:37~A discussion of exactly what stem cell therapy is, what's involved, the expense, often making it inaccessible and usually used as a last-ditch effort when all else has failed 9:53~further explanation of the patch, non-transdermal, made of amino acids and salt crystals, activates different reactions In the body 10:36~the science is putting frequencies on the skin that cause other reactions leading to doing some healing 11:04~David Schmidt is a scientist who was hired by the Navy to develop a patch for Navy Seals to replace amphetamines 12:02~Linsey uses a lot of patches now she has all her grandchildren living with her~more patches have been developed 12:24~David Schmidt brought this technology to a friend who was a coach of UCLA swimming, he's been developing and working on it ever since. Different patches are all based on the frequency 13:15~X39 patch is the holy grail -activates GHK Copper Peptides that decline with age 14:10~It's just actually about age reversal, have had a 70-year-old test with the body of a 50-year-old 15:00~Helps with all kinds of degenerative diseases, many testimonials, MS, Parkinson's 16:17~comparison of different frequency devices, AO Scan, Beamer, all are wonderful and if possible used right now to get through these times when we are bombarded with energies, 5G, EMF… 17:20~Linsey had an autoimmune disorder, 15-20 years ago, had to quit her job, “3-year retreat”, trusted spirit, found Kangen water, another healing modality which was expensive but a good investment as she was able to heal. 20:29~Our healthcare systems are frustrating, organ-based, siloed, going from one drug to the next, Band-Aid instead of getting at the deeper reason for illness, no quality of life 22:06~Doctors educated at medical schools funded by big pharma and are taught nothing in regards to energy even though they use technology like MRIs which could be used in healing 23:18 Bruce Lipton~Placebo effect 24:00~Potential for special needs communities is huge with these patches, also for parents and caregivers 24:21~Only restriction is not to use the patches during chemotherapy as it will detox the chemo 25:05 If the patch effect is too strong, take it off for a few hours. Linsey's experience with retracing 26:36~You won't want to stop, you will see a decrease in results if you do not continue use, Linsey is very upfront about this. This is an out-of-the-box business paradigm and opportunity!

Rare diseases as a health equity group. Rare doesn't mean never. Commonalities & differences.Learning from tiny populations. Chat with Doug Lindsay. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The fragility of health for Doug Lindsay 01:57. 1 Personal medical consultant finding answers 04:10. 2 Rare disease as an equity challenge 05:31. 2 Commonalities of people with rare diseases 09:46. 3 Helicopters, zebras, interns' disease in physician training 11:13. 4 Undiagnosed disease programs 14:24. 4 Categories of differences across rare diseases 15:28. 5 Comparative effectiveness methodologies 17:31. 5 Using existing models in new fields. Learning from tiny populations 20:59. 6 Leave us with something 23:59. 7 Rare doesn't mean never. Questions mean an opening 25:21. 7 Rare disease as a health equity group 27:04. 7 More than 25-30 million people have a rare disease 28:11. 8 Rare Disease Day 28:48. 8 NORD National Organization for Rare Diseases 30:45. 8 Reflection 33:07. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Lynne Becker, Morgan Gleason, Marnie Cartelli, Jill Johnson-Young, Adriana Mallozzi, Wesley Michael, Lauren Reimer-Etheridge, Sara Lorraine Snyder, Alexis Snyder, Jill Woodworth, CJ Rhodes, Rebecca Archer, Shiri Ben Arzi, Lisa Deck Links Doug Lindsay LinkedIn Opinion piece Rare Disease Day PCORI (Patient-Centered Outcomes Research Institute)'s Rare Disease Advisory Panel. Castleman's disease, David Fajgenbaum, the physician at UPenn who found his own cure and wrote the book Chasing My Cure NORD National Organization of Rare Diseases Esquilax Related podcasts https://health-hats.com/rare_disease_research/ https://health-hats.com/lead-by-example/ https://health-hats.com/a-zebra-not-a-horse-rare-patient-voice/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com.

I had the pleasure of interviewing James Davis recently on TSC Talks. As you'll hear in the podcast, we connected a little over a year ago when he was just getting started with Bay Staters for Natural Medicine and looking for volunteers. At that time, I'd been experimenting with microdosing psilocybin for mental health reasons, it was helping, and I thought I'd jump in. Life pulled me away from that volunteer work, but James made a profound impression on me, and I had the notion that he'd be successful in whatever he endeavored, particularly his advocacy around decriminalization of plant entheogens, as his passion, kindness, and honesty just stands out. When we connected to do the podcast, I was not surprised, but also surprised by the progress he and the growing team of volunteers he leads has made over the past year. He hits it home on so many topics within this pod, I thought it best just to include the full transcript. Thanks, James, for showing up, being such a divine-human and inspiring, and leading many to make a difference. Enjoy the pod! Links: https://www.baystatersnm.org/ https://linktr.ee/baystaters https://www.instagram.com/baystaters/ https://www.facebook.com/BayStaters https://twitter.com/baystaters "James Davis is a leader of Bay Staters for Natural Medicine. They have mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, Northampton, and Easthampton and have pending resolutions in Boston, Burlington (VT), Amherst, Worcester, Needham, Salem, and Medford. These resolutions decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction 55% after a single experience and have been proven to have statistically significant benefits for PTSD and depression. Their resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. In this episode, you will also learn about the other types of entheogenic plants and the power they hold to help us heal” Here's an excerpt from the transcript, the full transcript is available on the website. Here's an excerpt from the transcript, the full transcript is available here~https://tsctalks.com/tsc-talks-james-davis-transcript/ Jill W: [00:00:00] Hello, welcome to TSC talks. Your host, Jill Woodworth. Here. I am so glad to be with James Davis. He is a, he is a volunteer among other things, but my basis of meeting him was a volunteer and the leader of bay Staters for natural medicine. Just to give you a little background here before we get started, I'm going to read this, but. He's done tremendous work. I'm really excited to have him here. And I'll tell you how our paths crossed in a minute, but he's the leader for Bay Staters for natural medicine. They've mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, North Hampton. East Hampton pending resolutions in Boston, Burlington, Vermont Amhurst, Worcester, Needham, Salem, and Medford. These resolutions… resolutions, decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction. 55% after a single experience and have been proven to, have [00:01:00] statistically significant benefits for PTSD and depression. The resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. Let's see. And your day job, you're a legislative director to, Massachusetts state rep the chairs, the legislator's cannabis committee, and formally did legislative work for the city council of Berkeley. You have a master's degree in public administration from USC and a BA in economics and history from Columbia and your views do not necessarily represent your employer. One thing that I read in what I was researching you a little bit, was your personal connection? Actually, no, I'll let you go into it. So yeah. Why don't you tell me a little bit about yourself and about the advocacy work that you're doing and we will roll from. James D: Thanks, James, thank you so much for having me, Jill. I'm really excited to chat and I am really [00:02:00] grateful for the support you showed for bay Staters. When we were just a 10 follower Instagram group. We only started about a year and some months ago. And at that stage, We were just weirdos, emailing our city councils, sharing our stories with plant medicine. We took the philosophy that we didn't need to fundraise a lot of money. We didn't need to even have a website active to just start doing this advocacy work and start speaking from the heart. And you know, what this has snowballed into is really, really awesome and beautiful and all the lessons we've learned along the way and advocacy. About the medicines themselves just from meeting so many people whose lives have been changed with this psilocybin experience or an MDMA experiment experience or an LSD experience. So just really honored to be here and really glad that we met too. Yeah. Thanks. Yeah. To tell you a little bit more about who I [00:03:00] am. I know you mentioned all those credentials Yeah, they really don't define who I am. I would say. So I, I grew up in Kansas in a trailer park that was on the wrong side of the railroad tracks. So all the middle-class kids lived on one side of a Walmart supercenter. And then I lived on the side that was mostly liquor stores and churches and run-down streets. So. I was raised by my mom my biggest inspiration in life and she Growing up was always working multiple jobs to make ends me really inspire me to work hard as well. And then she was dealing with a lot of intergenerational trauma herself. Her father had served in the Pacific theater, the Korean war, and Vietnam. And. There was just a lot of, a lot of trauma that she had picked up from childhood and then relationships stemming from, from being a young woman and just growing [00:04:00] alongside her. It really shaped me into the person I am today and made me really compassionate to help people who are struggling in poverty who have that intergenerational trauma. So that's why I think fundamentally this line of work emerged from. Full transcript available at https://tsctalks.com

I had the pleasure of interviewing James Davis recently on TSC Talks. As you'll hear in the podcast, we connected a little over a year ago when he was just getting started with Bay Staters for Natural Medicine and looking for volunteers. At that time, I'd been experimenting with microdosing psilocybin for mental health reasons, it was helping, and I thought I'd jump in. Life pulled me away from that volunteer work, but James made a profound impression on me, and I had the notion that he'd be successful in whatever he endeavored, particularly his advocacy around decriminalization of plant entheogens, as his passion, kindness, and honesty just stands out. When we connected to do the podcast, I was not surprised, but also surprised by the progress he and the growing team of volunteers he leads has made over the past year. He hits it home on so many topics within this pod, I thought it best just to include the full transcript. Thanks, James, for showing up, being such a divine-human and inspiring, and leading many to make a difference. Enjoy the pod!Links: https://www.baystatersnm.org/ https://linktr.ee/baystaters https://www.instagram.com/baystaters/ https://www.facebook.com/BayStaters https://twitter.com/baystaters "James Davis is a leader of Bay Staters for Natural Medicine. They have mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, Northampton, and Easthampton and have pending resolutions in Boston, Burlington (VT), Amherst, Worcester, Needham, Salem, and Medford. These resolutions decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction 55% after a single experience and have been proven to have statistically significant benefits for PTSD and depression. Their resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. In this episode, you will also learn about the other types of entheogenic plants and the power they hold to help us heal”Here's an excerpt from the transcript, the full transcript is available on the website. Here's an excerpt from the transcript, the full transcript is available here~https://tsctalks.com/tsc-talks-james-davis-transcript/Jill W: [00:00:00] Hello, welcome to TSC talks. Your host, Jill Woodworth. Here. I am so glad to be with James Davis. He is a, he is a volunteer among other things, but my basis of meeting him was a volunteer and the leader of bay Staters for natural medicine. Just to give you a little background here before we get started, I'm going to read this, but. He's done tremendous work. I'm really excited to have him here. And I'll tell you how our paths crossed in a minute, but he's the leader for Bay Staters for natural medicine. They've mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, North Hampton. East Hampton pending resolutions in Boston, Burlington, Vermont Amhurst, Worcester, Needham, Salem, and Medford. These resolutions… resolutions, decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction. 55% after a single experience and have been proven to, have [00:01:00] statistically significant benefits for PTSD and depression. The resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. Let's see. And your day job, you're a legislative director to, Massachusetts state rep the chairs, the legislator's cannabis committee, and formally did legislative work for the city council of Berkeley. You have a master's degree in public administration from USC and a BA in economics and history from Columbia and your views do not necessarily represent your employer. One thing that I read in what I was researching you a little bit, was your personal connection? Actually, no, I'll let you go into it. So yeah. Why don't you tell me a little bit about yourself and about the advocacy work that you're doing and we will roll from. James D: Thanks, James, thank you so much for having me, Jill. I'm really excited to chat and I am really [00:02:00] grateful for the support you showed for bay Staters.When we were just a 10 follower Instagram group. We only started about a year and some months ago. And at that stage, We were just weirdos, emailing our city councils, sharing our stories with plant medicine. We took the philosophy that we didn't need to fundraise a lot of money. We didn't need to even have a website active to just start doing this advocacy work and start speaking from the heart.And you know, what this has snowballed into is really, really awesome and beautiful and all the lessons we've learned along the way and advocacy. About the medicines themselves just from meeting so many people whose lives have been changed with this psilocybin experience or an MDMA experiment experience or an LSD experience.So just really honored to be here and really glad that we met too. Yeah. Thanks. Yeah. To tell you a little bit more about who I [00:03:00] am. I know you mentioned all those credentials Yeah, they really don't define who I am. I would say. So I, I grew up in Kansas in a trailer park that was on the wrong side of the railroad tracks.So all the middle-class kids lived on one side of a Walmart supercenter. And then I lived on the side that was mostly liquor stores and churches and run-down streets. So. I was raised by my mom my biggest inspiration in life and she Growing up was always working multiple jobs to make ends me really inspire me to work hard as well.And then she was dealing with a lot of intergenerational trauma herself. Her father had served in the Pacific theater, the Korean war, and Vietnam. And. There was just a lot of, a lot of trauma that she had picked up from childhood and then relationships stemming from, from being a young woman and just growing [00:04:00] alongside her.It really shaped me into the person I am today and made me really compassionate to help people who are struggling in poverty who have that intergenerational trauma. So that's why I think fundamentally this line of work emerged from. Full transcript available at https://tsctalks.com

Jill Woodworth, host of TSC Talks gives a commentary on the notion of "finding a cure", which is the tag line for about every chronic disease, and how this notion often clouds the less than loving motives behind the industry, corporations, non-profits, medical system and more that extract energy, like a battery, from those for whom they claim to serve. There is always information to which the masses, those affected, and their entire support collective are not privy, which would allow for more light, more ways of figuring out how to genuinely and wholistically find a cure and at least improved quality of life along the way. Hold onto your hearts people, don't judge another's path, no matter what and love yourself if you do. NO matter what. Stay tuned for more content! https://tsctalks.com

Jill Woodworth, host of TSC Talks gives a commentary on the notion of "finding a cure", which is the tag line for about every chronic disease, and how this notion often clouds the less than loving motives behind the industry, corporations, non-profits, medical system and more that extract energy, like a battery, from those for whom they claim to serve. There is always information to which the masses, those affected, and their entire support collective are not privy, which would allow for more light, more ways of figuring out how to genuinely and wholistically find a cure and at least improved quality of life along the way. Hold onto your hearts people, don't judge another's path, no matter what and love yourself if you do. NO matter what.Stay tuned for more content! https://tsctalks.com

Jill Woodworth, Chief Financial Officer of Peloton, the global interactive fitness platform, speaks to Mark Fedorcik, Deutsche Bank's Global Head of Investment Bank, about how Peloton fosters community, how interactive technology differentiates the company and the future of fitness in the digital age. Jill also gives some thoughts from her distinguished career in investment banking prior to joining Peloton and her insight for bankers looking for the best way to serve their clients.

Podcaster. Chronicler of being human. Parent of 5, 3 of whom have Tuberous Sclerosis Complex (TSC), each with varying effect. Committed to giving voice to the underdog, the oppressed, those for whom being heard is crucial to survival and quality of life. Her podcast is Ranked on the Top 20 of Apple is Philippines, New Zealand and in China, with an enviable place in the USA on the top 200 medical/science podcast. Jill, is sharing her incredible and courageous story with MyJane, a life paved with difficult decisions.

McAfee finds a new security issue with Peloton. We have new instructors! Callie Gulickson and Rad Lopez. FORME and Barry's partner up. ICON Health & Fitness changes its name. What does Peloton's FCC filing for a new monitor really mean? Dr. Jenn - How to get up early for your workouts. Robin Arzon was back in the studio recording new content. CNN rates Peloton accessories based on your favorite instructor. Peloton has an official date for its Australian launch. Peloton debuted a new post-lockdown ad. The Hollywood Reporter talks about the "Hollywoodization" of Peloton. Jill Woodworth spoke at the Bank of America Merrill Lynch 2021 Global Technology Conference. Rolling Stone featured Head Of Music Gwen Bethel Riley. Is Peloton dangerous for men's junk? Angelo does a check-in with Crystal and Tom's MetPro journey. The latest "Ride To Greatness" win goes to @TeamValidate. The latest artist series features Big Freedia. Don't forget to wish a happy birthday to Selena Samuela (June 22) and Andy Speer and Denis Morton (both 6/23). All this plus our interview with Danielle Verwey!Love the show? Subscribe, rate, review, and share!Here's How »Join The Clip Out community today: theclipout.com The Clip Out Facebook The Clip Out Twitter The Clip Out Instagram See omnystudio.com/listener for privacy information.

McAfee finds a new security issue with Peloton. We have new instructors! Callie Gulickson and Rad Lopez. FORME and Barry's partner up. ICON Health & Fitness changes its name. What does Peloton's FCC filing for a new monitor really mean? Dr. Jenn - How to get up early for your workouts. Robin Arzon was back in the studio recording new content. CNN rates Peloton accessories based on your favorite instructor. Peloton has an official date for its Australian launch. Peloton debuted a new post-lockdown ad. The Hollywood Reporter talks about the "Hollywoodization" of Peloton. Jill Woodworth spoke at the Bank of America Merrill Lynch 2021 Global Technology Conference. Rolling Stone featured Head Of Music Gwen Bethel Riley. Is Peloton dangerous for men's junk? Angelo does a check-in with Crystal and Tom's MetPro journey. The latest "Ride To Greatness" win goes to @TeamValidate. The latest artist series features Big Freedia. Don't forget to wish a happy birthday to Selena Samuela (June 22) and Andy Speer and Denis Morton (both 6/23). All this plus our interview with Danielle Verwey! Love the show? Subscribe, rate, review, and share! Here's How » Join The Clip Out community today: theclipout.com The Clip Out Facebook The Clip Out Twitter The Clip Out Instagram

The first episode in this mini series is Jill Woodworth, the CFO of Peloton (NASDAQ:PTON). Since 2018, when Jill joined, Peleton has been on a hyper scale journey – she took the reins of the finance function when the business was a private, $200m revenue company. In under 4 years since then, it is now a $4b revenue business listed on the NASDAQ. The next two episodes are moving the spotlight away from the CEO and Founder to their most important partner in the business, the CFO. You can liken the role of the CFO to that of a navigator on a ship – charged with the responsibility of charting the course, tracking the journey and ensuring hazards are avoided along the way. CFO is often the most underestimated piece of the scaling puzzle, and why we felt the need to finally shine a spotlight on them. Jill gives some fascinating views into her transition out of investment banking, scaling her team from 12 to 200, working with a passionate founder, as well as what in her opinion makes for good investor relations. We also traverse the work that goes into preparing a company for an IPO. All these give deeply valuable insights into what it takes to scale quickly and effectively. This mini series was inspired by a blog post that TDM produced last year - “What makes a great CFO” and I hope this podcast episode brings this blog to life. You can follow TDM (linktr.ee/tdmgrowth) and host Ed Cowan (linktr.ee/eddiecowan) across social channels. Show notes// · Jill's background in banking and then transition into her role as CFO at Peloton (00:03:32) - Including the skills that were transferrable to the CFO role from her banking experience and the skills she felt she needed to develop (00:7:22) · How Jill's leadership style has evolved as the company has undergone hypergrowth (00:11:01) · The elevation of the role of the CFO within an organisation (00:13:47) · Skills that make for great CFOs (00:15:40) · Jill's relationship with Peloton Founder & CEO, John Foley: (00:18:06) · How has John's leadership style changed over time (00:21:31) · The role of the CFO in creating wonderful IR (23:35) · TDM blog 'What makes great IR' (00:26:15) · Insight into transitioning Peloton from private to public (00:27:02) - Including how this changed Jill's job (00:30:37) --- Send in a voice message: https://anchor.fm/tdm-growth-partners/message

John MIlls joins us to discuss Jill Woodworth's recent talk with JP Morgan. The Peloton Prophet has details on the new Tiger device. Bob Treemore has details on another apparent Peloton acquisition. Peloton now has different classes for different moods. There's a new Yoga challenge. There are more classes featuring mini-bands. Dr. Jenn - When the people in your life won't acknowledge your changing goals. Peloton announces their first U.S. factory. WellAndGood.com talks about Peloton's soft-relaunch of Yoga. Jezebel "investigates" who is Joe Biden's favorite instructor. Angelo joins us to talk about how to add protein to your diet. Irene Scholz is no longer with Peloton. Kendall was featured on The Today Show. Matty, Jess King, and Anna Greenberg teamed up with the Mental Health Coalition. Pop Sugar sat down with Ally Love. Shape.com talks with Jess King about her love of pilates.  The latest Artist series features Silk Sonic. Jess King has a birthday on May 29. Adrian Williams celebrates one year with Peloton. All this plus our interview with Ben Ptashinsky-Skinner!Love the show? Subscribe, rate, review, and share!Here's How »Join The Clip Out community today: theclipout.com The Clip Out Facebook The Clip Out Twitter The Clip Out Instagram See omnystudio.com/listener for privacy information.

John MIlls joins us to discuss Jill Woodworth's recent talk with JP Morgan. The Peloton Prophet has details on the new Tiger device. Bob Treemore has details on another apparent Peloton acquisition. Peloton now has different classes for different moods. There's a new Yoga challenge. There are more classes featuring mini-bands. Dr. Jenn - When the people in your life won't acknowledge your changing goals. Peloton announces their first U.S. factory. WellAndGood.com talks about Peloton's soft-relaunch of Yoga. Jezebel "investigates" who is Joe Biden's favorite instructor. Angelo joins us to talk about how to add protein to your diet. Irene Scholz is no longer with Peloton. Kendall was featured on The Today Show. Matty, Jess King, and Anna Greenberg teamed up with the Mental Health Coalition. Pop Sugar sat down with Ally Love. Shape.com talks with Jess King about her love of pilates.  The latest Artist series features Silk Sonic. Jess King has a birthday on May 29. Adrian Williams celebrates one year with Peloton. All this plus our interview with Ben Ptashinsky-Skinner! Love the show? Subscribe, rate, review, and share! Here’s How » Join The Clip Out community today: theclipout.com The Clip Out Facebook The Clip Out Twitter The Clip Out Instagram

Welcome to Episode 28 of Pelo Buddy TV, an unofficial Peloton podcast & Peloton news show. This week we cover the following topics, and interview Peloton rider & SiriusXM host Jenny Hutt: Was a Peloton Rower spotted in a R&D lab by Fortune magazine? Callie Gullickson is rumored to possibly be a new Peloton coach There are up to 6 new Peloton coaches who got training for Pilates last year The Peloton Android app got a small, but useful update last week Peloton won a small legal victory in one of its court cases with NordicTrack A survey of customers found Peloton to be the 2nd most relevant brand for 2021 The Peloton stock price has seen it shares of ups and downs recently Peloton’s CFO Jill Woodworth shared some interesting facts in an interview last week Peloton’s website seems to show shipping times might be speeding up slowly for new orders A new “Director of Original Content Development” is being hired New Peloton Barre classes were made available last week The “Revive & Thrive” challenge was launched, with a new badge of course A featured artist series took place with Bad Boy Entertainment The Spring line of apparel launched online worldwide & a new UK mother’s day line launched too Bustle wrote about how Chelsea Jackson Roberts is “Rewriting What Yoga Looks Like In The U.S.” Jess Sims spoke to Well + Good about how her father’s influence growing up, as well as how opening up and being vulnerable has not only helped others, but her as well Irene Scholz announced on Instagram she will be off the schedule a few weeks due to travel & quarantine restrictions DJ John Michael celebrated a birthday We interview Peloton rider & SiriusXM host Jenny Hutt You can find links to full articles on each of these topics from the episode page here: https://www.pelobuddy.com/pelo-buddy-tv-episode-28/ The show is also available via YouTube: https://www.youtube.com/c/PeloBuddy Please leave us a review on whatever podcast platform you are listening to the show on!  Also let us know your feedback. You can contact us at tv@pelobuddy.com – we’d love to hear your thoughts on ways to improve the show, or what guests to feature in future weeks. Also, if you get a shoutout and would like to be featured in the community shoutouts segment of the show, send in a video clip of your shoutout to shoutout@pelobuddy.com.

Welcome to Episode 18 of Pelo Buddy TV, an unofficial Peloton podcast & Peloton news show. This week, we interview Alex Quaas (#Fertilitydoc007), a fertility doctor who joined Peloton at the beginning of this spring, and cover the the following topics: A new rumor indicates Peloton will be launching “Class Stacking” soon – a new feature allowing you to create a playlist of Peloton classes, letting you take as many classes as you want back to back The on-demand library was purged this week, with approximately 8% of English-language cycling classes removed Peloton is expanding their regional campus (& support center) in Plano, Texas to a new building with nearly 100,000 square feet of office space Tunde Oyeneyin was announced as the newest member of the Bike Bootcamp team The annual “Year In Review” for 2020 will return with a look at stats for the year, but will be called ‘The Cooldown’ this year Peloton’s CFO Jill Woodworth will take part in the Barclays Global Technology, Media and Telecommunications Conference this week The list of Holiday & Festive classes for 2020 have been announced, as well as a Holiday Activity Challenge Outkast was featured in 4 different classes this past week Nicki Minaj will be featured in 2 classes this upcoming week Jess Sims announced a new “FLASH15” program for people crunched with time Ben Alldis is challenging people to retake his climb series, and will be participant too Rebecca Kennedy will be launching a “12 Days of Strength” program next week Peloton has clarified that they plan to launch more Peloton Barre classes in March 2021 The “Bring Your Spirit” winter apparel line dropped on Thursday Tunde Oyeneyin appeared as a guest on the “Ali on the Run” podcast Jenn Sherman & Tunde Oyeneyin celebrated birthdays this week Peloton CEO John Foley was featured as part of “The Bloomberg 50” We interview Alex Quaas (#Fertilitydoc007), a German born Fertility doctor who studied in Manchester and did his residency and fellowship in the United States, who joined peloton this spring. Let us know your feedback! You can contact us at tv@pelobuddy.com – we’d love to hear your thoughts on ways to improve the show, or what guests to feature in future weeks. Also, if you get a shoutout and would like to be featured in the community shoutouts segment of the show, send in a video clip of your shoutout to shoutout@pelobuddy.com.

TSC Talks discusses TSC in the time of Covid. Guest host Daniel Price joined Jill Woodworth for a roundtable discussion with guests Rob Grandia, Emilie Peters, Heather Still, Meghan Bittner, Joshua Stroup and Cathy Evanochko. Check out the time stamps below to find the information you feel will be most helpful and check out the links at the end of this document.Link to A.I. Transcription of the entire episode: https://otter.ai/s/QagpwwA0SPSIP-kaJs9SngMeghan shares that her doctor believes she had Covid very early on before we knew it was in the US. (6:53)Heather discusses what happened when her young son was admitted to the hospital for monitoring of seizures and how Covid complicated that. (8:46)Kathy discusses what it was like for her in Canada when Covid first hit. (10:24)Rob discusses what it was like to be on Capitol Hill in D.C. advocating for TSC support from politicians who obviously knew the seriousness of the virus (11:17)Josh and Emily discuss how difficult it is to find a job right now as new college graduates (13:24)Daniel discusses being furloughed from his job and how covid has impacted him. (15:20)Jill notes that her life has not changed that much due to Covid (17:02)Meghan discusses facing a serious health challenge during the shutdown. (18:28)Rob discusses telehealth and its benefits and limitations. (21:27)Josh speaks about his fear of going to hospitals for routine care at this time. (23:34)Emily does not like telehealth visits and prefers seeing her doctors face to face in person. (24:32)Heather and her children became sick with Covid. (25:48)Kathy speaks about the disruption of care due to Covid (26:33)Meghan shares about being in Minnesota and having life and medical care disrupted due to the racial justice riots and protests. (32:13)Further discussion about telehealth, its benefits and its shortcomings (33:58)The challenges of remote learning (37:23)Discussion of stress, anxiety and mental health concerns during Covid. (47:01)Stress and seizures (51:23)TSC, stress and covid, we are used to adjusting (53:23)Rob discusses the additional layer of stress caused by wildfires on the west coast (58:51)Meghan discusses the riots and protests in Minneapolis (1:00:46)Emily discusses the difficulty of being a new college graduate seeking a job (1:02:17)Daniel, also on the west coast, talks about the widfires and the additional level of physical and mental stress they cause (1:05:34)Kathy finds the blessings during Covid (1:06:25)Rob misses the normalcy of going on dates with his wife (1:07:58)Megan and Emilie talk gratitude (1:09:56)Finishing up with one word that sums it up for everyone (1:14:07)Rob Grandia Links:https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/ https://www.tsalliance.org/about-us/our-leadership/ https://www.pe.com/2016/05/19/health-walk-helps-fight-disease-that-attacks-internal-organs/ https://www.facebook.com/rob.grandia.3Daniel Price Links:Facebook: https://www.facebook.com/daniel.price.1694 Instagram: https://www.instagram.com/pricendaniel/ LinkedIn: https://www.linkedin.com/in/daniel-n-price-7270156a/ https://www.tsalliance.org/wp-content/uploads/2019/06/06-June-Adults-with-TSC-Newsletter.pdf https://www.rareiscommunity.com/2019/11/27/navigating-a-forever-home-with-a-rare-disease-daniels-story/Cathy Evanochko Links:Facebook: https://www.facebook.com/cathy.evanochko https://www.tscanada.ca/about-us/board-of-directors/ https://www.raredisorders.ca/about-cord/ https://www.tscanada.ca/about-us/Emilie Peters Links:Facebook: https://www.facebook.com/emilie.n.peters Instagram: https://www.instagram.com/emilie_peters_/ LinkedIn: https://www.linkedin.com/in/emilie-peters-95ba421a3/ https://prezi.com/p/pflgttwujtiq/what-is-tsc/ Heather Still Links:Instagram: https://www.instagram.com/hstillwaters/ LinkedIn: https://www.linkedin.com/in/heather-still-478a9991/ Joshua Shoup Links:https://www.timesonline.com/7b8a15ce-62c5-11e7-8fcb-ffa59dd8ad56.html Facebook: https://www.facebook.com/joshua.shoup.3 LinkedIn: https://www.linkedin.com/in/joshua-shoup-88777a1aa/ Meghan Bittner Links:Thanks for tuning in! We hope to produce another "TSC and COVID Convo" in early January. If you are interested in participating, contact TSC Talks on any of our social media channels.

TSC Talks discusses TSC in the time of Covid. Guest host Daniel Price joined Jill Woodworth for a roundtable discussion with guests Rob Grandia, Emilie Peters, Heather Still, Meghan Bittner, Joshua Stroup and Cathy Evanochko. Check out the time stamps below to find the information you feel will be most helpful and check out the links at the end of this document. Link to A.I. Transcription of the entire episode: https://otter.ai/s/QagpwwA0SPSIP-kaJs9Sng Meghan shares that her doctor believes she had Covid very early on before we knew it was in the US. (6:53) Heather discusses what happened when her young son was admitted to the hospital for monitoring of seizures and how Covid complicated that. (8:46) Kathy discusses what it was like for her in Canada when Covid first hit. (10:24) Rob discusses what it was like to be on Capitol Hill in D.C. advocating for TSC support from politicians who obviously knew the seriousness of the virus (11:17) Josh and Emily discuss how difficult it is to find a job right now as new college graduates (13:24) Daniel discusses being furloughed from his job and how covid has impacted him. (15:20) Jill notes that her life has not changed that much due to Covid (17:02) Meghan discusses facing a serious health challenge during the shutdown. (18:28) Rob discusses telehealth and its benefits and limitations. (21:27) Josh speaks about his fear of going to hospitals for routine care at this time. (23:34) Emily does not like telehealth visits and prefers seeing her doctors face to face in person. (24:32) Heather and her children became sick with Covid. (25:48) Kathy speaks about the disruption of care due to Covid (26:33) Meghan shares about being in Minnesota and having life and medical care disrupted due to the racial justice riots and protests. (32:13) Further discussion about telehealth, its benefits and its shortcomings (33:58) The challenges of remote learning (37:23) Discussion of stress, anxiety and mental health concerns during Covid. (47:01) Stress and seizures (51:23) TSC, stress and covid, we are used to adjusting (53:23) Rob discusses the additional layer of stress caused by wildfires on the west coast (58:51) Meghan discusses the riots and protests in Minneapolis (1:00:46) Emily discusses the difficulty of being a new college graduate seeking a job (1:02:17) Daniel, also on the west coast, talks about the widfires and the additional level of physical and mental stress they cause (1:05:34) Kathy finds the blessings during Covid (1:06:25) Rob misses the normalcy of going on dates with his wife (1:07:58) Megan and Emilie talk gratitude (1:09:56) Finishing up with one word that sums it up for everyone (1:14:07) Rob Grandia Links: https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/ https://www.tsalliance.org/about-us/our-leadership/ https://www.pe.com/2016/05/19/health-walk-helps-fight-disease-that-attacks-internal-organs/ https://www.facebook.com/rob.grandia.3 Daniel Price Links: Facebook: https://www.facebook.com/daniel.price.1694 Instagram: https://www.instagram.com/pricendaniel/ LinkedIn: https://www.linkedin.com/in/daniel-n-price-7270156a/ https://www.tsalliance.org/wp-content/uploads/2019/06/06-June-Adults-with-TSC-Newsletter.pdf https://www.rareiscommunity.com/2019/11/27/navigating-a-forever-home-with-a-rare-disease-daniels-story/ Cathy Evanochko Links: Facebook: https://www.facebook.com/cathy.evanochko https://www.tscanada.ca/about-us/board-of-directors/ https://www.raredisorders.ca/about-cord/ https://www.tscanada.ca/about-us/ Emilie Peters Links: Facebook: https://www.facebook.com/emilie.n.peters Instagram: https://www.instagram.com/emilie_peters_/ LinkedIn: https://www.linkedin.com/in/emilie-peters-95ba421a3/ https://prezi.com/p/pflgttwujtiq/what-is-tsc/ Heather Still Links: Instagram: https://www.instagram.com/hstillwaters/ LinkedIn: https://www.linkedin.com/in/heather-still-478a9991/ Joshua Shoup Links: https://www.timesonline.com/7b8a15ce-62c5-11e7-8fcb-ffa59dd8ad56.html Facebook: https://www.facebook.com/joshua.shoup.3 LinkedIn: https://www.linkedin.com/in/joshua-shoup-88777a1aa/ Meghan Bittner Links: Thanks for tuning in! We hope to produce another "TSC and COVID Convo" in early January. If you are interested in participating, contact TSC Talks on any of our social media channels.

This is the full-length audio recording of our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with Tuberous Sclerosis Complex. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body. They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you! Get info at: https://tsctalks.com Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21 To order Forest Bathing and learn more: https://tsctalks.com This is the full-length video from our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with TSC. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body. They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you! Get info at: https://tsctalks.com Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21 To order Forest Bathing and learn more: This is the full-length video from our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with TSC. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body. They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you! Get info at: https://tsctalks.com Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21 To order Forest Bathing and learn more: https://igg.me/at/forestbathing/x#/ https://tsctalks.com

This is the full-length audio recording of our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with Tuberous Sclerosis Complex. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body. They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!Get info at: https://tsctalks.comBrooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21To order Forest Bathing and learn more: https://tsctalks.comThis is the full-length video from our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with TSC. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body. They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!Get info at: https://tsctalks.comBrooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21To order Forest Bathing and learn more: This is the full-length video from our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with TSC. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The individual and/or parent/caregiver becomes quite knowledgeable but is put in positions no individual, parent or family should be in making high-level medical decisions on a daily basis in crisis laden situations. Our systems of care have become akin to a "Tower of Babel" and TSC care often exposes these broken and siloed systems. Tuberous Sclerosis Complex is a genetic condition that causes benign tumors to grow in different organs of the body. They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC, recently launched a product that, while not designed to treat or cure, is made with hemp components, terpenes and early reviews are phenomenal. It is called Forest Bathing and brings the benefits of the forest, to you!Get info at: https://tsctalks.comBrooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Check out her Facebook here: https://www.facebook.com/brookey21To order Forest Bathing and learn more: https://igg.me/at/forestbathing/x#/https://tsctalks.com

Create an inclusive, accessible co-working space for aspiring entrepreneurs with disabilities, small startups, or groups that serve the disability community. QuirkLaabs. hollarhype. Puffin Innovations. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:57. 1 The right place at the wrong time 04:11. 1 Technology that fits itself to the user 09:51. 3 Get hyped by the voices that matter most 14:36. 3 Checking off boxes 19:26. 4 Adapting to uncertainty 25:03. 5 Leveraging abilities to access better solutions 27:59. 6 A hug from eight arms (Now!??) 34:01. 7 Reflection 39:17. 8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger John Lennon's Imagine by the InterPlay Company Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Diane Gould, Mary Devlin, Mary Ulrich, Jill Woodworth, Mary Lawler, Mekhala Raghavan, Lauren Reimer-Etheridge, Julie Flygare, Sara Lorraine Snyder Links Email QuirkLaabs hollarhype PlayLocal.com Puffin Innovations myXpressions 70/30 Partners My'Empowerment Easter Seals Massachusetts Akimbo District Hall Advocates, Inc. Related podcasts and blogs https://health-hats.com/inspire-me-once-inspire-me-twice/ https://health-hats.com/ya_transition/ https://health-hats.com/but-you-can-total-self-care-at-13/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Greetings. The background music is John Lennon's Imagine played by the InterPLAY Company Band non-profit music organization of 67 adult musicians with and without cognitive and other differences. They rehearse at Strathmore Hall in Rockville Maryland. Readers be sure to have a listen. Brings happy tears to my eyes. Connection and community stoke my fires – a counterweight to Multiple Sclerosis and fatigue. Producing this podcast episode renewed my awareness of and gratefulness for connection and community in my life: Family connections, music connections; communities of podcasters and patient/caregiver advocates, decision support experts; leadership, storytelling, and marketing mastermind groups; a book club. These connections and communities nurture me, feed me, and draw me in. The networks also need care and feeding by me to sustain th...

Create an inclusive, accessible co-working space for aspiring entrepreneurs with disabilities, small startups, or groups that serve the disability community. QuirkLaabs. hollarhype. Puffin Innovations. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:57. 1 The right place at the wrong time 04:11. 1 Technology that fits itself to the user 09:51. 3 Get hyped by the voices that matter most 14:36. 3 Checking off boxes 19:26. 4 Adapting to uncertainty 25:03. 5 Leveraging abilities to access better solutions 27:59. 6 A hug from eight arms (Now!??) 34:01. 7 Reflection 39:17. 8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger John Lennon's Imagine by the InterPlay Company Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Diane Gould, Mary Devlin, Mary Ulrich, Jill Woodworth, Mary Lawler, Mekhala Raghavan, Lauren Reimer-Etheridge, Julie Flygare, Sara Lorraine Snyder Links Email QuirkLaabs hollarhype PlayLocal.com Puffin Innovations myXpressions 70/30 Partners My’Empowerment Easter Seals Massachusetts Akimbo District Hall Advocates, Inc. Related podcasts and blogs https://www.health-hats.com/inspire-me-once-inspire-me-twice/ https://www.health-hats.com/ya_transition/ https://www.health-hats.com/but-you-can-total-self-care-at-13/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Greetings. The background music is John Lennon’s Imagine played by the InterPLAY Company Band non-profit music organization of 67 adult musicians with and without cognitive and other differences. They rehearse at Strathmore Hall in Rockville Maryland. Readers be sure to have a listen. Brings happy tears to my eyes. Connection and community stoke my fires – a counterweight to Multiple Sclerosis and fatigue. Producing this podcast episode renewed my awareness of and gratefulness for connection and community in my life: Family connections, music connections; communities of podcasters and patient/caregiver advocates, decision support experts; leadership, storytelling, and marketing mastermind groups; a book club. These connections and communities nurture me, feed me, and draw me in.

Staying sane in an insane situation. How do our front-line, essential workers, all of them juggling duty, passion, family, income, pressure? How do moms, babies, and their partners manage the blurring of tragedy and trauma and hope and possibility? I’m grateful for nurses like Jodi Churchill Chapin, OB and Green Nurse. You’re in my heart. Let’s celebrate the year of the nurse. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:52. 1 Introducing Jodi Churchill Chapin 02:18. 1 Nursing and social distancing 05:09. 2 Figuring it out – adapting 09:56. 2 The struggle is real – postpartum depression, abuse, and aloneness 18:20. 4 What can we do? Trust? 20:14. 4 Reading the room – like the clowns 22:49. 5 Keeping your family safe 26:53. 5 Bug out bag ready to go 31:49. 6 Green nurse with cannabis – pulling it together 34:07. 7 Reflection 39:42  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger I Feel Good by James Brown Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Jill Woodworth, Curtis Cates, Linda DeRosa, Jessica Conaway, Kathy Pooler, Joyce Slater, Missy Belotti, MaryBeth Shadow, Catherine Munyua, Jim McEvoy, Lillie Rizack, Lea Rizack, Jason Stewart, Amy Faeskorn, Rebecca Archer, Eileen Terrill, Paulette Seymour-Route Links Jill Woodworth of TSC Talks, the podcast fame Green Nurse Group Green Nurse on the Grow Disrupt America. Good Morning Shut-in Related podcasts and blogs https://www.health-hats.com/three-young-adults-22-years/ https://www.health-hats.com/lessons-from-the-clowns-when-going-to-the-doctors/ https://www.health-hats.com/seize-control-cede-control-as-ceo-of-your-health/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I Feel Good! James Brown. I didn’t know how I’d tie this episode together. What was the storyline? We’re going to hear my conversation with Jodi Churchill Chapin, an OB nurse, and green nurse – she supports moms delivering babies, and she advises people on the use of medical marijuana. How do those fit together? While I’m editing this episode, I’m also working out the horn part of I Feel Good on my bari sax. OK. I’m a bit down; eyeball deep in Covid19; maintaining my best health routin...

Staying sane in an insane situation. How do our front-line, essential workers, all of them juggling duty, passion, family, income, pressure? How do moms, babies, and their partners manage the blurring of tragedy and trauma and hope and possibility? I'm grateful for nurses like Jodi Churchill Chapin, OB and Green Nurse. You're in my heart. Let's celebrate the year of the nurse. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:52. 1 Introducing Jodi Churchill Chapin 02:18. 1 Nursing and social distancing 05:09. 2 Figuring it out – adapting 09:56. 2 The struggle is real – postpartum depression, abuse, and aloneness 18:20. 4 What can we do? Trust? 20:14. 4 Reading the room – like the clowns 22:49. 5 Keeping your family safe 26:53. 5 Bug out bag ready to go 31:49. 6 Green nurse with cannabis – pulling it together 34:07. 7 Reflection 39:42  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger I Feel Good by James Brown Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Jill Woodworth, Curtis Cates, Linda DeRosa, Jessica Conaway, Kathy Pooler, Joyce Slater, Missy Belotti, MaryBeth Shadow, Catherine Munyua, Jim McEvoy, Lillie Rizack, Lea Rizack, Jason Stewart, Amy Faeskorn, Rebecca Archer, Eileen Terrill, Paulette Seymour-Route Links Jill Woodworth of TSC Talks, the podcast fame Green Nurse Group Green Nurse on the Grow Disrupt America. Good Morning Shut-in Related podcasts and blogs https://health-hats.com/three-young-adults-22-years/ https://health-hats.com/lessons-from-the-clowns-when-going-to-the-doctors/ https://health-hats.com/seize-control-cede-control-as-ceo-of-your-health/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I Feel Good! James Brown. I didn't know how I'd tie this episode together. What was the storyline? We're going to hear my conversation with Jodi Churchill Chapin, an OB nurse, and green nurse – she supports moms delivering babies, and she advises people on the use of medical marijuana. How do those fit together? While I'm editing this episode, I'm also working out the horn part of I Feel Good on my bari sax. OK. I'm a bit down; eyeball deep in Covid19; maintaining my best health routine and trying to ...

Chat with Sara Lorraine Snyder: 'As a person living with a disability, we're already used to the world being able to hurt us or bring us down, whether from other people judging or saying things or your body being funky and doing not behaving in an optimal way. Just knowing that now there's something, especially for people like me living with lung conditions and whatnot that there's something that can very well take us out if it so pleased.' Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:53. 1 Managing uncertainty and life change 02:20. 1 Art and music in Covid world 09:09. 3 Long term changes in habits 13:59. 4 High school to college 15:54. 4 A leg up with lived experience 19:48. 5 Reflection 25:16. 6 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Fred Small singing the Talking Wheelchair Blues. Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Alexis Snyder, Morgan Gleason, Amy Gleason, Fatima Muhammed Ighile, Ososa Ighile, Jill Woodworth, Mary Lawler Links Sara reading poetry Sara playing guitar Related podcasts and blogs https://www.health-hats.com/16-sophomore-all-in/ https://www.health-hats.com/looking-out-for-each-other/ https://www.health-hats.com/ya_transition/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Often, lately, listening, and reading about people coping with Covid19 makes me weary, weary, weary. Pent up grief, draining sadness. I’m building more Covid-free time into my days, especially first thing in the morning and the last thing before I go to bed.  Instead, I’m reading Lord Peter Wimsey short stories by Dorothy Sayers, a Jack Reacher tale by Lee Child, and Avenue of Mysteries by John Irving.  Mindless, not mindful. Thankfully, talking to my friend, Sara Lorraine Snyder, enervates and uplifts me. Not mindless, not sad, hopeful. If you follow my podcasts, you might remember Sara from my podcast series on Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care. We heard from Sara and her mom, Alexis.  I’m grateful Sara agreed to satisfy my curiosity and share her experience in the Covid19 world. Managing uncertainty and life change Health Hats: Sara Lorraine Snyder.

Chat with Sara Lorraine Snyder: 'As a person living with a disability, we're already used to the world being able to hurt us or bring us down, whether from other people judging or saying things or your body being funky and doing not behaving in an optimal way. Just knowing that now there's something, especially for people like me living with lung conditions and whatnot that there's something that can very well take us out if it so pleased.' Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:53. 1 Managing uncertainty and life change 02:20. 1 Art and music in Covid world 09:09. 3 Long term changes in habits 13:59. 4 High school to college 15:54. 4 A leg up with lived experience 19:48. 5 Reflection 25:16. 6 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Fred Small singing the Talking Wheelchair Blues. Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Alexis Snyder, Morgan Gleason, Amy Gleason, Fatima Muhammed Ighile, Ososa Ighile, Jill Woodworth, Mary Lawler Links Sara reading poetry Sara playing guitar Related podcasts and blogs https://health-hats.com/16-sophomore-all-in/ https://health-hats.com/looking-out-for-each-other/ https://health-hats.com/ya_transition/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Often, lately, listening, and reading about people coping with Covid19 makes me weary, weary, weary. Pent up grief, draining sadness. I'm building more Covid-free time into my days, especially first thing in the morning and the last thing before I go to bed.  Instead, I'm reading Lord Peter Wimsey short stories by Dorothy Sayers, a Jack Reacher tale by Lee Child, and Avenue of Mysteries by John Irving.  Mindless, not mindful. Thankfully, talking to my friend, Sara Lorraine Snyder, enervates and uplifts me. Not mindless, not sad, hopeful. If you follow my podcasts, you might remember Sara from my podcast series on Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care. We heard from Sara and her mom, Alexis.  I'm grateful Sara agreed to satisfy my curiosity and share her experience in the Covid19 world. Managing uncertainty and life change Health Hats: Sara Lorraine Snyder.

In this episode, Mike Robinson, Founder, Global Cannabinoid Research Center, Cannabis Advocate, Cancer Survivor joins Jill Woodworth to discuss his MILLION MILLIGRAM GIVEAWAY of CBD to alleviate the dire need of many within compassion communities affected by coronavirus. Mike shares his own lived experience as a special needs advocate for many years and how devastating it is to learn of past clients struggling profusely in light of the drop off of IEP services post Coronavirus restrictions. "Kids in regular ed will have free home school by their computer every day, paid for by the US government. And there's absolutely zero announcement about the most vulnerable members of society that attend public school in special education. There is Zero an announcement about the civil rights and protections put in place by our government to the 1971 Omnibus bill that created DHS, that created CPS, that created the Individual with Disabilities Education Act that requires states to take the funds that they got and create programs for children and special education. These are very strict laws regarding how you use these funds. And the issue right now is not whether or not there's a pandemic, a cold, a virus. The issue is that states that have received billions and billions of dollars in funding for special education. They commingle those into their regular funds. So now they have gone ahead and used that money and now are going ahead and allowing parents to call and say, "Hey, I can't help what's going on at home", to lose their child. So, by lack of supporting children who are federally protected with these supports, we are facing a crisis, of epidemic proportions." "People tell me that "Oh, it's not my business plan. Oh, I can't give this away. Oh I'm going bankrupt "and I am like, "Guess what? What you give comes back. Always". If you give negativity it comes back to you. When you give a loan. It comes back to you. If you expect instant gratification, when you give. guess what? It's not happening. There's no remuneration, there's money coming to you for giving. It's love and love is returned. You put love out to the world, and it's infectious. It's way more infectious than the Coronavirus. Yeah, so that's my plan. My plan is to put love into the world. 1 million milligrams, a million milligrams, and the details are still being worked out. It's pretty awesome. So people can get a small amount of CBD oil mailed to them or they'll pick it up and have something that they can use to help themselves their loved ones" Mike learned about compassion under the tutelage of Dennis Peron, an American activist and businessman who became a leader in the movement for the legalization of cannabis throughout the 1990s. He influenced many in California and thus changed the political debate on marijuana in the United States. Dennis passed away on January 27, 2018 (aged 72). https://en.wikipedia.org/wiki/Dennis_Peron Please join us in sharing this podcast within and without the Cannabis Industry to garner as much support as possible. Donations are needed and welcomed! Please email: 50Kreasons@gmail.com, or pjlacy6@gmail.com and check out Mike's page on our site: https://tsctalks.com/special-contributor-mike-robinson/the-mike-drop/ for more information. Mike's Links: ounder of: https://mikesmedicines.com https://genevievesdream.com https://globalcannabinoidrc.com https://carouselchallenge.com

The second episode of The Mike Drop is dedicated to Charlotte Figi who recently passed due to complications from Epilepsy. Mike Robinson, who is also afflicted by Epilepsy and host, Jill Woodworth, who has children with Tuberous Sclerosis related epilepsy, have an intense discussion of Mike's first memory of hearing about Charlotte Figi, "My whole journey with cannabis started with looking at a picture of Charlotte. I mean literally when I first started using cannabis and CBD I didn't even know how to use it. I'd been using cannabis my whole life pretty much, smoking it, but not using medicinally and ingesting it. I didn't even know I was eating CBD because a roommate was giving it to me who couldn't pronounce it. A guy from Korea was calling it can't eat it all. And then finally one day, he spelled it out for me, Cannabidiol, and I went to Google the committee all and popped, Charlotte Figi" From here Mike goes into extensive detail regarding the importance of valuing our time and treasuring the moments because of the uncertainty inherent in an epilepsy diagnosis, whether actively seizing or not. "There are only so many days left. My days matter. So for us, in the world of epilepsy, we are rich with life. We don't need the money to have to value our time." Mike gives an eloquent explanation of a "cytokine storm", what it is, how it is relevant to status epilepticus AND COVID 19 and how Charlotte Figi's passing enabled Mike to connect the dots. "So when I look at the impact that she had, it's not just on the cannabis industry. It's right now during the height of a global pandemic, the impact that allowed me just one little guy in an eight by eight Research Center office to dig deep into this different response to the immune system. And it's really not that different, like we talked about. Somebody tears ligament in their knee. The immune system is what causes this cytokine storm that causes swelling in that knee. It's that basic. So the person has a problem in their lungs, from COVID-19, it's the immune system sending the fluid there, the person has a bunch of seizures, and a lot of gets inflamed. It's the immune system again." We discuss a product that's in development, "So literally what I put everything down for and it wasn't just a response to COVID-19, because when you respond to a cytokine storm, you're responding to every last health issue that causes this. There's a lot of them as we've gone over. The very same formulations I have been working on work for cancer patients undergoing chemo to release free radicals. For anybody who's exposed to anything ...to be safe. It also works for an athlete who just worked out real hard, and for anyone that's just too stressed. Let's say a mom taking care of their special needs kid all day long. backache stressed out, needs to rest, is going nuts. I developed something anyone could put on their body doing something they do every single day.." From here we go into more into detail on products being developed that make claims about treating COVID19 and the dire importance of ending cannabis prohibition, and getting all hands on deck researching and developing an endless number of potential treatments for so many conditions. Mike discusses the challenges to the autism and special needs population escalated by COVID19 and how dire and frustrating what's happening with our loved ones who need relief and treatments now. One of his constant goals that is coming to fruition, is bringing to market cannabis strains that address the autism symptoms and other challenges that have afflicted so many individuals and families many of which CAN BE addressed utilizing the powers of cannabinoid medicine. A parting quote: "I just want to remember Charlotte, and I want to do it in a positive, positive light. We had an angel, visit our earth and stay here for a brief period of time. And whilst you hear the number of lives changed, weren't in the millions, weren't in the tens of millions, I would say more like hundreds of millions. The number of lives that will be changed because this angel visited our earth will hit the billions without a doubt. Yeah, I get chills. So talk about an angelic being. I believe that Charlotte he will forever be looking over us, for will forever be watching us in our labs, watching farmers in their fields, watching patients as they're using their medicine forever." God Speed. Mike's Links: https://mikesmedicines.com https://genevievesdream.com https://globalcannabinoidrc.com https://carouselchallenge.com Mike's bio: Mike Robinson, the founder of the Global Cannabinoid Research Center in Santa Barbara California, is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for Severe epilepsy, Chronic Lyme Disease, PTSD, and in pain management. Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. His post grad education, however is not in cannabis or cannabinoid medicine, rather it’s focus was International Relations and Diplomacy. Robinson has an extensive history of leading a large compassion program that provided countless disadvantaged cannabis patients with various alternative protocol treatments, is a published journalist and international cannabinoid research specialist, is a former registered Civil Rights lobbyist and non attorney that represented countless disabled children pro bono nationwide for over 2 decades. He’s a past board member of Big Brothers and Sisters, the founder of multiple non profits for disabled children, and is well known for adopting a severely disabled child, Genevieve, from the compassion program he once ran.

A frank discussion with John D. Brigham partner/boyfriend of the host of TSC Talks, Jill Woodworth on his experience moving in with our family dealing with extreme circumstances TSC related, trauma-related. How we made it work and how we're coping now. We will cover TAND, behavior mgmt issues, relationship challenges, and strategies, cannabinoid medicine and coping. All are welcome, participation encouraged. JD Brigham is from way up north in VT, has a background in healthcare IT, has a son from a previous relationship, a long time cannabis enthusiast and one of the most incredible humans I know.John or JD as they know him in Newport, Vermont, where he was born, is a man of few- but carefully chosen words. A highly skilled programmer in the medical/healthcare industry, he also recently worked as a technology teacher at Stetson School in Barre, MA, a school for behaviorally challenged young boys/men. Harnessing the life lessons learned early from growing up in a large family with working parents who passed on a depth of inner wisdom, perseverance, and commitment that John has tapped and utilized well to help "crack the code" of my offspring's TSC associated neuropsychiatric disorders (TAND) and many other challenges that are inevitable in any relationship where there's more than just two people involved, but particularly one where several children have issues that fall outside of the margins of typical. Oh and John also loves skiing, football, and Animé

A frank discussion with John D. Brigham partner/boyfriend of the host of TSC Talks, Jill Woodworth on his experience moving in with our family dealing with extreme circumstances TSC related, trauma-related. How we made it work and how we're coping now. We will cover TAND, behavior mgmt issues, relationship challenges, and strategies, cannabinoid medicine and coping. All are welcome, participation encouraged. JD Brigham is from way up north in VT, has a background in healthcare IT, has a son from a previous relationship, a long time cannabis enthusiast and one of the most incredible humans I know. John or JD as they know him in Newport, Vermont, where he was born, is a man of few- but carefully chosen words. A highly skilled programmer in the medical/healthcare industry, he also recently worked as a technology teacher at Stetson School in Barre, MA, a school for behaviorally challenged young boys/men. Harnessing the life lessons learned early from growing up in a large family with working parents who passed on a depth of inner wisdom, perseverance, and commitment that John has tapped and utilized well to help "crack the code" of my offspring's TSC associated neuropsychiatric disorders (TAND) and many other challenges that are inevitable in any relationship where there's more than just two people involved, but particularly one where several children have issues that fall outside of the margins of typical. Oh and John also loves skiing, football, and Animé

Here is the audio version of the Facebook Live episode that aired on March 26, 2020. The YouTube link for the video is as follows: https://youtu.be/cIp6BinWD6c In this episode, Dr. Uma joined host Jill Woodworth on TSC Talks Facebook page to engage in a discussion on the impact of #Coronavirus/ #COVID19 We'll talk about the personal impact, local impact in MA on the cannabis community, and beyond MA, Info on symptoms, knowing when to stay home and when to contact a doctor, what we can do to decrease our risk and boost our immune system. Dr. Uma shared thoughts on the importance of learning from this global pandemic, and how we can come together despite social distancing, and hold onto hope that there is life after Covid19, and hope is important as we walk through this very challenging and confusing time. Thank you for watching and/or listening !!

Here is the audio version of the Facebook Live episode that aired on March 26, 2020. The YouTube link for the video is as follows: https://youtu.be/cIp6BinWD6c In this episode, Dr. Uma joined host Jill Woodworth on TSC Talks Facebook page to engage in a discussion on the impact of #Coronavirus/ #COVID19 We'll talk about the personal impact, local impact in MA on the cannabis community, and beyond MA, Info on symptoms, knowing when to stay home and when to contact a doctor, what we can do to decrease our risk and boost our immune system. Dr. Uma shared thoughts on the importance of learning from this global pandemic, and how we can come together despite social distancing, and hold onto hope that there is life after Covid19, and hope is important as we walk through this very challenging and confusing time. Thank you for watching and/or listening !!

It's time for the weekly episode of Let's Talk Autism! Today, Shannon has an interview with Jill Woodworth, Host of TSCTalks! Don't miss it! TscTalks.com Like Autism Live on Facebook at http://facebook.com/autismlive Sign up for Autism Live’s free newsletter at: http://www.autism-live.com/join-our-email-list.aspx Autism Live is a production of the Center for Autism and Related Disorders (CARD), headquartered in Woodland Hills, California, and with offices throughout, the United States and around the globe. For more information on therapy for autism and other related disorders, visit the CARD website at http://centerforautism.com

Mallory Smith lived and died with Cystic Fibrosis. Mallory wrote, "Salt in My Soul: An Unfinished Life." In this fifteen episode of Young Adults with Complex Conditions, I speak with mother, Diane. Mallory was Captain of her own ship, lived HAPPY, and shares many lessons with us. Heart-warming affirmation! Tragic, tragic, tragic! Blog subscribers: Scroll down through show notes to read the post. If you'd like to listen to the podcast, click here or the title Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Diane Shader Smith 00:55. 1 Health IS fragile 04:40. 2 Self-care. A common question. 06:05. 2 Managing and coordinating care 08:04. 3 Who’s doing what? Team roles. 14:40. 4 Captain of her ship and the Control Freak 15:54. 5 Unforgiving Cystic Fibrosis 18:40. 5 Gifts and superpowers 22:24. 6 The ship reflects its Captain 25:24. 7 Lessons from Mallory 26:45. 7 What does healthy look like now? 33:23. 9 Reflection 38:37. 10 Links Find the full series here Mallory's 65 Roses - book Diane wrote Salt in My Soul on Amazon Protecting Sleep in the Hospital, for Both Patients and Doctors Documentaries by the people making a movie about Mallory The Invisible War, The Hunting Ground Phage therapy  An experimental treatment that may have worked for Mallory and shows promise LungesforLungs Notes Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer Dustjacket Photo by Diane Shader Smith About the Show Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  We will listen and learn about what it takes to adjust to life's realities in healthcare’s Tower of Babel.  Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Introducing Diane Shader Smith My Opa, my father’s father, survived the Bergen-Belsen Concentration Camp. He also survived my dad’s death. He told me that he suffered more from losing a son than the concentration camp. I’m unhappy to say that I share the experience of losing a child with my Opa and Diane Shader Smith. Diane’s daughter, Mallory, kept extensive journals about her life with Cystic Fibrosis. Diane continued the bittersweet journey of shaping those journals into the book, Salt in my Soul, an Unfinished Life after Mallory died. I’m beginning and ending the conversations in this Young Adults with Complex Conditions series with solo parents - speaking with a parent and not their children - the first with Jill Woodworth and the last with Diane. I sought to provide a platform to share the stories of the young adults with perspective provided by parents, clinicians, and teachers. To hear Mallory’s story, please read the book. While Diane is engaging and well spoken,

Alexis Snyder, a parent of a teenager with chronic complex health issues since birth, shares her journey. She speaks about accepting what is, helping her daughter prepare to manage the many transitions in medical care from infancy to adulthood, the challenges of a siloed medical system, and a fear of losing control of her daughter's health as she let's go of responsibility. Loving, determined, vulnerable. The third interview in a series on Young Adults with Complex Conditions Transitioning from Pediatric to Adults Medical Care. Blog subscribers: If you don't see the podcast player, click here Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time xx:xx. page #) Episode introduction 00:00. 1 Podcast introduction 02:58. 2 Tell me about yourself 03:45. 2 Accepting what is. Move on. 07:11. 3 2 a.m. freak outs 10:24. 4 Helping Sara transition to adulthood 13:04. 5 Not one transition. Many. 17:09. 6 Easing into the transition 20:15. 7 Sympathetic, not empathetic 24:24. 8 Losing control 29:44. 10 Closing 32:52. 11 Follow my blog and podcast 11 Previously in series #011 Three young adults. 22 years #012 16, Sophomore, All-in Young adults crossing the threshold from pediatric to adult healthcare Links PCORI Engagement and Advisory Panels Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer Photo by Filip Kominik on Unsplash Generosity by the Snyder family About the Show Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats, and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  We will listen and learn about what it takes to adjust to life's realities in healthcare’s Tower of Babel.  Let's make some sense of all this. To subscribe go to the blog https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. Full transcript Episode introduction 00:00 Hey there, blog readers and podcast listeners. I'm having a serious blast expanding my craft of communication with you about empowering people as they travel together toward best health. Adding the medium of sound has been a stretch for me while tapping my creative juices.  I'm testing various ways to blend written, oral and sound experiences while telling stories and advocating for us, people at the center of care. I've published the first two interviews about young adults with complex conditions transitioning from pediatric to adult medical care. I got on to this topic while attending a PCORI Advisory Panel (Patient Centered Outcomes Research Institute). A fellow panel member, Kate Houghton, effectively advocated for funding research into the challenges of young adults transitioning from pediatric to adult care. Turns out I know young adults, parents, and clinicians who are willing to be interviewed. Voila, the series has begun. We started with Jill Woodworth, a mom of three young adults with complex conditions.

Interview with Jill Woodworth, mother of 4, three with Tuberous Sclerosis, managing the transition from pediatric to adult medical care. Fascinating, frustrating, heart-breaking, and inspiring. Silos and boundaries,  crossing the threshold, primary physician,  autonomy, self-management. One of the scenarios with the most boundaries, cracks, and thresholds is where young adults with complex medical conditions transition from pediatric to adult care. "If there's any communication, that has to go through me. Unfortunately, I have to network that system and that's just really cumbersome." "I can also help other people that have questions about how to transition. I'm certainly not an expert. But boy, it is something that I wish I always say do it the earlier the better. The earlier you can think about it the better." "He's learning. Like I taught him to get his own meds, you know, it's kind of meeting each one of them where they are and what they can do. But it's hard." Throughout my 45-year career in health care, I’ve been attracted to boundaries, the cracks between those boundaries, and have found myself drawn to welcoming people as they cross the threshold between those boundaries and cracks. Healthcare professionals often refer to silos. The silo of cardiology, the silo of surgery – silos by specialties. Then the silos of setting – hospital, home, clinic, long term care, emergency care, intensive care. Then the silos of professions – doctors, surgeons, nurses, therapists, then “other” professionals – social workers, acupuncturists, chiropractors. So, you see where I’m coming from when I say boundaries and cracks. Well, I’m a fixer by nature.  Not the Michael Cohen variety of fixer but making it better. And the opportunity for better can be found at boundaries and cracks. These boundaries are never going away. It’s a product of specialization. To be an expert in something you need boundaries. “My specialty is within these boundaries.” Therefore, fixing can be found when we treat boundaries as thresholds and welcome people across thresholds. In my experience, one of the scenarios with the most boundaries, cracks, and thresholds is where young adults with complex medical conditions transition from pediatric to adult care. So, welcome to the Health Hats podcast series about young adults transitioning from pediatric to adult medical care. In this series, I will interview young adults with complex medical conditions, their parent or guardians, point-of-care clinicians caring for these young adults, and whoever else I find of interest in this fascinating, frustrating, heart-breaking, and inspiring world. My first interview of the series is with Jill Woodworth, a mother of four who has three children with Tuberous Sclerosis. Tuberous Sclerosis Complex or TSC is a genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, skin and lungs. It’s also the leading genetic cause of both epilepsy and autism. I met Jill through her podcast, TSC Talks. I reached out to her and we set up a two-way interview. You can find Jill’s interview of me on her website. It’s Episode 28, Ripple. You can find these links in the show notes. Blog subscribers: If you don't see the podcast player, click here Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE   Episode Notes PREFER TO READ, HARD OF HEARING, OR DEAF? Find full transcript here Time-stamped sections Series introduction. 1 Podcast introduction 2:32. 2 Episode introduction 03:04. 2 Please contribute 04:01. 2 One Parent. Three Young Adults. 22 Years.  04:28. 2 Silos and boundaries 04:48. 3 Transitioning? The earlier the better 09:56. 4 Primary physician who knows you best? 12:52. 5 Autonomy. Meet them where they are 12:52. 6 Is there hope for the system? 18:01. 7 How do you find a minute? 20:06. 8

In this episode, TSC Talks Audio Editor Interviews grizzled TSC veteran, Jill Woodworth on what happened, what she learned, who she met and what's next. How understanding the impact of trauma has been the key that unlocked the doors to the integration of past experience, with present reality and how finding a way to have some quality of life in the midst of much uncertainty has been the motivating factor for developing the podcast. From diagnosis of TSC 3 times to the present day, there is something in this episode for everyone; from TSC affected, special needs parents, anyone who's struggled with coming to terms with witnessing the suffering of their loved ones frequently, having to figure out ways to help with few road maps and,how that impacts us as parents and caregivers. We must find "shelter from the storm" and keep moving forward despite continual challenges on many fronts in order to survive and help our loved ones affected.

In this episode, TSC Talks Audio Editor Interviews grizzled TSC veteran, Jill Woodworth on what happened, what she learned, who she met and what's next. How understanding the impact of trauma has been the key that unlocked the doors to the integration of past experience, with present reality and how finding a way to have some quality of life in the midst of much uncertainty has been the motivating factor for developing the podcast. From diagnosis of TSC 3 times to the present day, there is something in this episode for everyone; from TSC affected, special needs parents, anyone who's struggled with coming to terms with witnessing the suffering of their loved ones frequently, having to figure out ways to help with few road maps and,how that impacts us as parents and caregivers. We must find "shelter from the storm" and keep moving forward despite continual challenges on many fronts in order to survive and help our loved ones affected.

Previous podcast guest, Dorina Leslie, Interviews host Jill Woodworth on her experience with TSC in her children, impact personally and how this led to her involvement with Marine Corp Marathon TS Alliance, Team TSC as well as origins of TSC Talks podcast, development and motivations.

Previous podcast guest, Dorina Leslie, Interviews host Jill Woodworth on her experience with TSC in her children, impact personally and how this led to her involvement with Marine Corp Marathon TS Alliance, Team TSC as well as origins of TSC Talks podcast, development and motivations.

Jill Woodworth chats with her son Jack, age 14, about what it's like to have TSC.

Jill Woodworth chats with her son Jack, age 14, about what it's like to have TSC.