Making Headway

In this episode of the Making Headway podcast, hosts Alison and Eryn welcome Toni Hickman, an Emmy award-winning music artist and aneurysm survivor. Toni shares her inspiring journey of overcoming two brain aneurysms and a stroke, and how these experiences shaped her identity and music career. The conversation delves into themes of disability, the societal pressures of perfectionism, and the importance of embracing one's journey. Toni discusses her Emmy-winning song and the creative process behind her lyrics, emphasizing the power of music as a form of therapy and expression. The episode concludes with a reflection on the beauty of diversity and the value of every individual's story.KeywordsToni Hickman, disability, music, aneurysm survivor, empowerment, mental health, perfectionism, creativity, resilience, Emmy awardTakeaways· Toni Hickman is an Emmy award-winning music artist and aneurysm survivor.· She experienced two brain aneurysms and a stroke at a young age.· Toni's journey highlights the impact of disability on identity and self-worth.· The concept of perfection is an illusion that affects many people.· Embracing life after disability can lead to greater appreciation for oneself and others.· Toni's music serves as a powerful form of expression and therapy.· The creative process for Toni's songs often feels channeled from a higher energy.· Lyrics can convey deep messages about resilience and self-acceptance.· Everyone has value, regardless of their circumstances or challenges.· Toni encourages listeners to find beauty in diversity and to learn from every individual.Sound Bites"Perfection is the illusion.""You can learn from anyone.""Everyone in life has value.""I will never stop believing in me.""It just came out through me.""Beauty's in many different forms."Chapters00:00 Introduction to Toni Hickman01:06 Toni's Journey with Aneurysms04:16 The Impact of Disability on Identity09:43 Perfection as an Illusion13:18 Embracing Life After Disability17:08 The Emmy-Winning Song and Its Message20:08 The Creative Process Behind the Music23:19 The Power of Lyrics and Their Meaning27:37 Finding Beauty in Diversity28:35 Connecting with Toni and Her WorkReach out to Toni's music is on all major streaming platforms or at tonihickman.comToni Hickman on all the socials: @therealtonihickmanApple podcasts: Toni Hickman ShowEryn on IG @eryn_makingheadwaypodcastAlison on IG @alison_maknigheadwayodcastMHP on IG @makingheadwaypodcast Go to our website www.makingheadwaypodcast.com for full show notes and resourcesSupport us atPatreonDonate section on

In this episode of the Making Headway Podcast, hosts Alison and Eryn welcome back Nia Renee, who shares her journey through multiple brain surgeries and the impact of chronic illness on her relationships. Nia discusses her transition from being a brain injury survivor to a relationship coach, focusing on helping others navigate the complexities of relationships affected by trauma and chronic illness. The conversation highlights the importance of medical advocacy, personal growth, and the challenges faced by those living with chronic conditions. In this conversation, the speakers delve into the complexities of navigating medical trauma, the importance of self-advocacy, and the emotional toll of job loss. They discuss the significance of journaling as a tool for self-reflection and the necessity of setting boundaries to protect oneself from toxic relationships. The dialogue emphasizes the power of vulnerability and the importance of finding supportive relationships that uplift rather than drain energy.Keywordsbrain injury, recovery, relationship coaching, chronic illness, narcissistic abuse, medical advocacy, emotional healing, personal growth, medical trauma, self-advocacy, job loss, identity, journaling, boundaries, toxic relationships, support systems, chronic illness, empowermentTakeaways· Nia has undergone six brain surgeries due to Chiari 1 malformation and idiopathic intercranial hypertension· Chronic illness can significantly impact personal relationships.· Medical gaslighting is a common issue for patients with rare conditions.· Nia's husband plays a crucial role in advocating for her health.· Nia transitioned to relationship coaching to help others with similar experiences.· The importance of having proper medical credentials as a coach.· Nia's journey includes confronting her past relationships and trauma.· Building a supportive community is vital for recovery.· Nia emphasizes the need for self-advocacy in healthcare settings.· Personal growth often comes from confronting difficult experiences. Advocating for oneself is crucial in the face of medical trauma.· Job loss can significantly impact one's identity and sense of purpose.· Journaling serves as a powerful tool for self-reflection and understanding triggers.· Setting boundaries is essential for mental health and well-being.· Recognizing toxic relationships is key to personal growth and healing.· Support systems play a vital role in recovery and self-empowerment.· It's important to prioritize self-care and personal needs.· Documenting experiences can provide clarity and validation.· Vulnerability can lead to stronger, more authentic relationships.· Everyone deserves to feel supported and valued in their relationships.Sound Bites"Relationships are a big part of our recovery.""I started having the strangest symptoms.""I decided to bet on myself""You have to document everything""I gaslit myself for so long""I would rather spend my life alone""It's worth cutting out the shit""I married someone that has protected me""You deserve to feel that""You have to prioritize...

Women experience brain aneurysms at a higher rate than men. Are we alone in wondering what is behind this disparity? NO! This week, we welcome Rosalind Lai MD, a neurosurgeon performing research sponsored by a grant through The Bee Foundation. Dr. Lai and her team are trying to understand the role of the X chromosome in the development of cerebral aneurysms. Understanding this linkage could lead to the discovery of genetic markers for cerebral aneurysms and give insight into the gender differences we see in this condition. The hope would be that eventually we can test for genetic markers and provide treatments that turn down the expression of these genes which would lead to the prevention of brain aneurysms. Join Eryn, Alison, Rosalind and Erin Kreszl of The Bee Foundation (TBF) as we discuss TBF's fourth pillar—research. Listen to learn more about brain aneurysms and this exciting research project!KeywordsThe Bee Foundation, brain aneurysm, research, gender differences, genetics, prevention, awareness, support, advocacyTakeaways· The Bee Foundation supports research, advocacy, awareness, and support for brain aneurysm prevention.· Brain aneurysms can be asymptomatic until they rupture, making awareness crucial.· Women are at a higher risk for developing brain aneurysms compared to men.· This research is focused on understanding the genetic and hormonal factors that contribute to aneurysm risk in women.· The Bee Foundation has funded over $600,000 in research grants over the past 11 years.· Genetic research aims to identify specific genes that may increase aneurysm risk.· Understanding the role of the X chromosome could provide insights into gender differences in aneurysm development.· Lifestyle factors like smoking and hypertension also play a significant role in aneurysm risk.· The complexity of aneurysm development makes it a challenging area for research and prevention.· Community support and engagement are vital for advancing research and awareness efforts.Sound Bites"We have four main program areas that we support.""What is an aneurysm?""We want to find these targets.""Aneurysm is a multi risk factor disease."Chapters00:00 Introduction to the Bee Foundation and Its Mission03:11 Understanding Brain Aneurysms06:10 Research Focus: Gender Differences in Aneurysms09:50 The Role of Genetics in Aneurysm Development19:30 Future Directions in Aneurysm Research26:38 Engagement and Support from the CommunityReach out toThe Bee Foundation https://www.thebeefoundation.org/ Email: info@thebeefoundation.orgRosalind, call 716-218-1000Eryn on IG @eryn_makingheadwaypodcastAlison on IG @alison_maknigheadwayodcastMHP on IG @makingheadwaypodcast Go to our website www.makingheadwaypodcast.com for full show notes and...

Join Cody Bryant, a brain injury survivor, as he shares his recovery journey, including his accident in Spain, challenges with care, and neuro rehab experience. Cody discusses the changes in his personality, relationships, and emotional regulation post-injury. He emphasizes self-care strategies like meditation and explores topics such as diet, supplements, TMS, physical therapy, and navigating the healthcare system. Cody and Eryn also highlight the importance of community support and vulnerability in the healing process.Keywordsbrain injury, recovery, challenges, care, personality changes, relationships, emotional dysregulation, self-care, meditation, brain injury, rehabilitation, diet, nutrition, supplements, grounding, transcranial magnetic stimulation, TMS, physical therapy, healthcare system, community, vulnerabilityTakeaways· Brain injury survivors often face challenges in receiving proper care, especially when abroad.· Personality changes and emotional dysregulation are common after a brain injury, and it can be difficult for loved ones to adjust to these changes.· Self-care is crucial for brain injury survivors, and finding strategies like meditation can help manage the effects of the injury.· Social engagement can be draining for brain injury survivors, and it's important to find a balance between pushing oneself and avoiding brain fatigue.· Diet and nutrition play a significant role in brain injury recovery, but healthcare professionals often overlook this aspect.· Supplements and grounding techniques can also support brain injury recovery.· Transcranial magnetic stimulation (TMS) may improve social stamina and have positive effects on depression and PTSD.· Neuro IFRAH is a systematic approach to physical therapy that can help regain motor function after a brain injury.· The healthcare system often fails to recognize the long-term nature of brain injury recovery and the need for ongoing support.· Sharing experiences and being part of a supportive community can provide motivation and a sense of purpose in the recovery journey.Sound Bites"I thought everyone was trying to kill me and I thought they were trying to steal my genetics.""I was ripping out my IV and catheter constantly.""People closest to me basically had to grieve the person I used to be.""I started reading that book and that was kind of my initial start of recognizing that nutrition played a big role in recovery.""I do like a urine test every morning to make sure I'm in ketosis.""I wear this helmet that puts these electromagnetic waves through my brain for anywhere from 30 minutes to an hour every day."Chapters00:00 Introduction and Apology for Guest Absence01:07 Guest Introduction: Cody Bryant01:39 Cody's Accident in Spain and Severe Traumatic Brain Injury03:42 Challenges in Receiving Proper Care05:18 Fear and Delirium in the ICU08:35 Transfer to Neuro Rehab and Limited Stay10:08 Difficulties in Recognizing Brain Injury11:49 Struggling with Identity and Personality Changes14:29 Impact on Relationships and Grieving the Old Self17:39 Emotional Dysregulation and Mood Swings19:23 Navigating Relationships and Understanding Triggers21:23 Using Meditation as a Reset and Self-Care Strategy23:25 Balancing Pushing Oneself and Avoiding Brain Fatigue26:52 The Role of Diet and Nutrition29:29 Supplements and Grounding...

In this episode of the Making Headway Podcast, Eryn sits down with stroke survivor and advocate, Ralph Cortese, to dive deep into the critical questions every stroke survivor should be asking their healthcare team. From navigating the maze of medical care to understanding insurance and case management, Ralph shares his personal journey and expert insights on overcoming the challenges of stroke recovery.This conversation explores the key elements of healing, from rehabilitation and mental health to community support and dietary considerations. Discover the importance of advocacy, asking the right questions, and building a support system that can make all the difference in your recovery journey.Tune in to hear Ralph's powerful message about hope, resilience, and the tools that can help stroke survivors reclaim their lives. Whether you're recovering from a stroke or supporting someone who is, this episode is packed with practical tips, emotional support, and expert advice you won't want to miss. Keywords brain injury, stroke recovery, advocacy, mental health, rehabilitation, support groups, survivor stories, healthcare, patient empowerment, community support, stroke recovery, insurance case management, stroke prevention, medication management, dietary needs, paralysis recovery, daily living tools, patient advocacyTakeaways· Advocacy is crucial for brain injury survivors.· Understanding the type of stroke can guide recovery.· Patients should feel empowered to ask questions.· Mental health support is essential post-stroke.· Community and peer support can significantly aid recovery.· Rehabilitation specialists play a vital role in recovery.· Social workers can provide necessary resources and support.· Life coaching can help set and achieve recovery goals.· It's important to know the causes of your stroke for lifestyle changes.· Finding a supportive community can enhance mental health. · Get a case manager from your insurance company for support.· Understanding risk factors for another stroke is crucial.· Always call an ambulance if you suspect a stroke.· Be informed about your medications and their side effects.· Dietary needs may change after a stroke; ask about them.· Recovery from paralysis can take time; seek appropriate therapies.· There are tools available to assist with daily living tasks post-stroke.· Asking questions is vital for effective communication with healthcare providers.· Keep a journal of questions and symptoms for doctor visits.· Utilize online portals to communicate with your healthcare team.Sound Bites"You have to ask what type of stroke you had.""Social workers can change everything.""Life coaching can help you set better goals.""Find your tribe.""Don't take the chance. Call an ambulance.""What medications do I need?""Will I need a special diet?""How long does this paralysis last?""There's probably a brace for that."Chapters00:00 Introduction to the Making Headway Podcast01:01 Ralph Cortese's Stroke Journey03:51 The Importance of Advocacy in...

Jim Scott, a traumatic brain injury survivor, shares his journey of recovery, detailing the physical and cognitive challenges, including memory loss and expressive aphasia. He also discusses the emotional hurdles of navigating relationships and disclosing his injury, maintaining a positive attitude and sense of humor throughout. Jim talks about his book, More Than a Speed Bump, and his work as a speaker raising awareness about brain injuries. He emphasizes the importance of support from organizations like the Krempels Center and the role pets have played in his healing. Jim is also involved in his family's pet food business, Rawz, which donates all its profits to brain and spine injury nonprofits and to training service dogs. He is available for speaking engagements to share his inspiring story.Keywordstraumatic brain injury, recovery, challenges, physical effects, cognitive effects, memory loss, expressive aphasia, dating, disclosing, positive attitude, sense of humor, disability, brain injury, adaptation, challenges, emotional struggles, book, speaking engagement, Krempel Center, support, pet food business, charityTakeaways· Traumatic brain injury can have both physical and cognitive effects, including memory loss and expressive aphasia.· Disclosing a brain injury while dating can be a personal decision, but it can also help potential partners understand and support you better.· Maintaining a positive attitude and a sense of humor can be helpful during the recovery process.· Recovery from a brain injury can be a slow and tedious process, but with the right support and therapy, significant progress can be made.· Brain injury survivors may experience fatigue and have to manage their energy levels carefully.· The physical effects of a brain injury, such as weakness and limping, can sometimes serve as visible reminders of the injury. Living with a disability can be challenging, especially when others misunderstand your abilities.· Writing and speaking about your experience can be a therapeutic way to process and share your story.· Support from organizations like the Krempels Center can provide a sense of community and help with rehabilitation and recovery.· Pets can play a significant role in the healing process and provide emotional support.· Finding ways to give back and make a positive impact can be empowering and fulfilling.Chapters00:00 Introduction and Background01:08 The Impact of a Family Member's Spinal Cord Injury02:05 Jim's Own Traumatic Brain Injury03:21 Recovery and Memory Challenges06:15 Physical Rehabilitation and Progress07:42 Life After Rehabilitation08:57 Cognitive Effects and Acceptance10:21 Advocating for Physical Improvements11:28 Disclosing Brain Injury in Dating13:13 The Fatigue Factor14:16 Dating Challenges and Funny Stories16:47 Navigating Disclosure of Brain Injury18:09 Misconceptions About Brain Injury19:38 Living with a Disability20:40 Writing and Speaking About My Experience22:20 The Power of Support: The Krempel Center and Community25:01 The Healing Power of Pets31:13 Giving Back: The Impact of the Family Pet Food BusinessReach out to Jim Scott email jim@morethanaspeedbump.comRawz dog and cat food

Join Alison and Tymiak Hawkins, a courageous brain hemorrhage survivor, as he opens up about his remarkable journey of recovery and personal transformation. After a life-altering stroke, Ty redefined his priorities and mindset, unlocking a deeper sense of purpose and potential. In this inspiring conversation, Ty shares how a strong support system, discovering your 'why,' and practices like breathwork, visualization, and positive affirmations played a key role in his healing. His story is a powerful reminder of the resilience of the human spirit and the light that can emerge even in the darkest times. Tune in today and get ready to be inspired!SummaryIn this conversation, Ty Hawkins and Alison discuss the importance of mindset and perspective in overcoming challenges and finding gratitude in everyday life. They emphasize the need to shift from a negative mindset to a positive one and to appreciate the good moments in each day. They also discuss the role of spirituality in their healing journeys and the importance of listening to God's guidance. Ty shares his plans for rebranding his book and future projects, including a trilogy that explores the mind, body, and spirit. Overall, the conversation highlights the power of acceptance, gratitude, and personal growth.Keywordsbrain hemorrhage, recovery, personal growth, priorities, mindset, purpose, potential, support system, 'why', breath work, visualization, positive affirmations, resilience, mindset, perspective, gratitude, spirituality, healing, acceptance, personal growthTakeawaysA traumatic experience can lead to personal growth and a shift in priorities.Having a strong support system and a clear 'why' can help navigate through difficult times.Practicing breath work, visualization, and positive affirmations can aid in healing and personal development.Finding light and beauty in brokenness can lead to a deeper understanding of oneself. Shift from a negative mindset to a positive one and appreciate the good moments in each day.Listen to God's guidance and trust that you are built for the challenges you face.Acceptance and gratitude are key to finding peace and fulfillment in life.Embrace personal growth and continue to learn and evolve.Find inspiration in the stories and journeys of others.Sound Bites"We're all broken, but there's still beauty in things that are broken.""Out with the bad, in with the good.""You don't know what you need if you don't understand what you have right now.""I have bad thoughts sometimes. Not all my thoughts are good and I honor them. I try to understand where they come from. And therefore then I try to shift my mindset to something positive.""Was your whole day bad or were just a few moments of your day bad? So let's do a review of what's good happened, what bad happened. And let's really see if the day was good or bad or not.""Maybe I should be grateful that I have $80 to pay for breakfast or I was, I had, you know, I was fortunate enough that I didn't have to do that."Chapters00:00 Introduction and Ty's Brain Hemorrhage03:00 The Impact of the Stroke and Discovering a New Purpose08:01 Appreciating the Present and Embracing a Positive Mindset13:03 The Power of a Strong Support System17:56 Self-Reflection and Healing Through Breath Work22:47 Visualizing a Better Future and Embracing Brokenness25:21 The Power of Perspective and Gratitude30:08 Spirituality and Healing35:34 Acceptance and Personal Growth38:48 Future Projects and Inspiring OthersReach out to Tymiak Hawkins on IG

In this episode of the Making Headway Podcast, host Eryn speaks with Bryce Daly, a stroke and aneurysm survivor who shares his incredible journey from being a promising student athlete to navigating the challenges of recovery and living with aphasia. Bryce recounts the traumatic experience of his stroke, the subsequent coma, and the long road to rehabilitation. He discusses the emotional and physical hurdles he faced, the importance of support from family and friends, and offers valuable advice for others dealing with similar challenges. The conversation highlights the resilience of the human spirit and the power of community in recovery.Keywordsbrain injury, stroke survivor, aphasia, recovery, support, resilience, mental health, community, rehabilitation, survivor storyTakeaways· Bryce had a 5% chance for survival after his stroke.· Recovery from a stroke can be a long and challenging journey.· Aphasia can lead to feelings of frustration and isolation.· Support from family and friends is crucial during recovery.· It's important to advocate for oneself in social situations.· Memory can be affected by brain injuries, but it can also improve over time.· Engaging in physical therapy is essential for regaining strength and mobility.· Community support can make a significant difference in recovery.· Don't give up on communication; progress takes time and patience.· Sharing experiences can help others feel less alone in their struggles.Sound Bites"I was in a coma for weeks.""Don't give up.""I can't remember everything.""I love my memory.""I can remember everything."Chapters00:00 Introduction to the Making Headway Podcast00:47 Bryce's Survivor Story: From Athlete to Stroke Survivor06:03 The Journey Through Coma and Recovery11:49 Living with Aphasia: Challenges and Triumphs18:00 Advice for Others with Aphasia and Brain Injuries24:10 Community and Support: Reaching Out for HelpReach out to Bryce on IG @bryceweeklyEryn on IG @eryn_makingheadwaypodcastAlison on IG @alison_maknigheadwayodcastMHP on IG @makingheadwaypodcast Go to our website www.makingheadwaypodcast.com for full show notes and resourcesSupport us atPatreonDonate section on our website.

Have you had trouble sorting your mind out post brain injury? Does everything seem like it is floating around (maybe in there, maybe not) but just out of reach? Do you feel especially anxious and have trouble finding a place that you fit now? Join us in this episode as Dr. Kyla Pearce from Love Your Brain explains the building blocks of their free programming to help you in your brain injury recovery. Through mindfulness, yoga, and support they help teach ways to soothe the nervous system and rebuild pathways that help you better cope with all that brain injury throws at you. This is truly something different than traditional rehab. It is powerful and free. Listen to learn more! SummaryIn this episode of the Making Headway Podcast, hosts Erin and Alison welcome Dr. Kyla Pearce from the Love Your Brain Foundation. They discuss the foundation's mission to support individuals affected by traumatic brain injury (TBI) through community building, resilience training, and mindfulness practices. Dr. Pearce shares personal stories about the challenges faced by TBI survivors and the importance of finding a new identity post-injury. The conversation emphasizes the significance of caregiver support, the role of gratitude in recovery, and the need for accessible programs that foster healing and connection.KeywordsLove Your Brain, traumatic brain injury, resilience, community support, mindfulness, yoga, caregiver support, mental health, recovery, brain healthTakeaways· Love Your Brain Foundation was founded to support TBI recovery.· Community spaces are vital for those affected by TBI.· Recovery is different from resilience; resilience focuses on adaptation.· Mind-body practices help individuals reconnect with their bodies.· Caregivers also need support and understanding.· Gratitude can shift our mindset towards positivity.· Resilience skills can be learned and practiced.· The importance of shared experiences in healing.· Accessible programs are crucial for all individuals affected by TBI.· Finding meaning and purpose is essential in the recovery journey.Sound Bites"We create community spaces for TBI recovery.""Recovery vs. resilience is a key concept.""It's hard to get back to regular life."Chapters00:00 Introduction to Love Your Brain Foundation03:05 The Journey of Recovery and Resilience05:57 Community Support and Shared Experiences08:59 Mind-Body Practices for Healing11:52 The Importance of Caregiver Support14:47 Resilience Framework and Life Skills17:49 Finding Meaning and Purpose21:05 The Role of Gratitude in Recovery23:49 Accessible Programs for All27:03 Conclusion and Call to ActionLearn more about LoveYourBrain:About LYBCNN Heroes, featuring LYB RetreatsResearch Reach out to Learn more about LoveYourBrain's work and...

Summary In this episode of the Making Headway Podcast, Octavia Burrell shares her experience of dating after a brain injury. Octavia had a brain hemorrhage at the age of 24 and had to rebuild her life and career. She discusses the challenges of dating as a brain injury survivor and the importance of taking the time to heal and focus on personal growth before entering into a new relationship. Octavia emphasizes the need for alignment and connection with a partner who understands and supports her journey. In this conversation, Octavia, Alison, and Eryn discuss their experiences with dating and relationships after a brain injury. They talk about the importance of setting boundaries, recognizing red flags, and prioritizing self-care. They also touch on the challenges of dating with a brain injury and the need for open communication and understanding. The conversation highlights the importance of self-reflection and personal growth in building healthy relationships. Keywords brain injury, dating, relationships, personal growth, healing, career, support, dating, relationships, brain injury, boundaries, red flags, self-care, communication, personal growth Takeaways · Dating after a brain injury can be challenging, as survivors may have different needs and experiences compared to before their injury.· Taking the time to heal and focus on personal growth is important before entering into a new relationship.· Finding a partner who understands and supports the journey of a brain injury survivor is crucial.· Building a strong sense of self and stability before dating can lead to healthier and more fulfilling relationships. Setting boundaries and recognizing red flags are crucial in dating and relationships after a brain injury.· Prioritizing self-care and personal growth is essential for building healthy relationships.· Open communication and understanding are key in navigating the challenges of dating with a brain injury.· Listening to your intuition and honoring your needs and wants is important in finding a compatible partner.· Taking time to heal and create a supportive environment is necessary for personal growth and building healthy relationships. Sound Bites"You really should not lead with that when you're going out with people.""You really, this will be the last time you go this kind of round with somebody.""For me to want to integrate somebody in my life, they have to be at that level or better.""I sort of protect her a little bit and she kind of protects me""I do have to really think about everything that I've been able to accomplish and really be proud of that""It's more about the person, the relationship, that sort of foundational structure. That means more to me than a child"Chapters00:00 Introduction and Background01:09 Octavia's Experience and Journey05:14 The Challenges of Dating After a Brain Injury09:08 Moving and Settling Down12:53 Taking the Time for Personal Growth23:19 Being Selective and Aligned in Relationships26:13 The Importance of Self-Work and Stability30:13 Supportive Relationships and Protecting Each Other37:45 Navigating Red Flags in Dating48:01 Personal Growth and Emotional Pathways52:29 Changing the Environment for Healing57:14 Recognizing Codependency Patterns and Personal Growth59:46 Setting Boundaries and...

In this episode of the Making Headway podcast, Eryn and Alison welcome Erin Kreszl and Jaime Meltzer from The Bee Foundation, an organization dedicated to brain aneurysm prevention. Jaime shares her personal story of losing her sister to a brain aneurysm and how it propelled her into advocacy and support for others affected by similar tragedies. The conversation explores the impact of brain aneurysms on families, the importance of community support, and the need for awareness and research in this often-overlooked area of health. The episode emphasizes the significance of support groups and the healing power of sharing experiences with others who understand the pain of loss.KeywordsBee Foundation, brain aneurysm, support groups, grief, awareness, community, prevention, research, personal stories, advocacyTakeaways· The Bee Foundation focuses on brain aneurysm prevention and awareness.· Jamie Meltzer's advocacy began after losing her sister to a brain aneurysm.· Support groups provide a vital outlet for those grieving a loss.· There is a lack of awareness about brain aneurysms and their impact.· Community support can help individuals cope with grief and loss.· The Bee Foundation offers various support groups for different needs.· Grief affects families in unique ways, and support is crucial.· Raising awareness can help prevent future tragedies related to brain aneurysms.· Personal stories can inspire others to get involved and support the cause.· Finding a community can alleviate feelings of isolation during grief.Sound Bites"I want the why and I want to prevent it.""It's the worst headache of your life.""I never want to be part of that support group."Chapters00:00 Introduction to the Bee Foundation and Personal Stories07:01 The Impact of Brain Aneurysms on Families13:51 Support and Community through the Bee Foundation21:00 Navigating Grief and Finding Hope24:59 Conclusion and Call to Action Reach out to The Bee Foundation Support https://www.thebeefoundation.org/tbf-brain-aneurysm-support-hive/The Bee Foundation on IG @thebeefoundationJaime Meltzer @2dogs1kidsEryn on IG @eryn_makingheadwaypodcastAlison on IG @alison_maknigheadwayodcastMHP on IG @makingheadwaypodcast Go to our website www.makingheadwaypodcast.com for full show notes and resourcesSupport us atPatreonDonate section on

Introduction Brain injury is uncharted territory for many, you included! Finding reliable help that, well, actually helps ,is daunting if not impossible to find. Eric Kubeka has been there. In his desperation to heal after a TBI he found functional medicine providers that actually helped his brain fog, memory issues, mental health challenges, etc. Eric has turned what he learned into a coaching business to help others find their way out of the dark and into their new selves. Join us today to learn more!SummaryEric Kubeka, a brain coach and TBI survivor, shares his journey of recovery from a traumatic brain injury (TBI) and the strategies he used to improve his symptoms. He emphasizes the importance of addressing hormonal imbalances and working with a neuroendocrinologist to optimize hormone levels. Eric also discusses the role of natural supplementation, lifestyle changes, and exercise in his recovery. He highlights the need for personalized treatment plans and the challenges of navigating insurance coverage for specialized lab tests. Eric's story inspires hope and resilience in the face of brain injury. Eric Kubeka shares his journey of recovering from a traumatic brain injury and how he now helps others through his Brain Barbarians platform. He emphasizes the importance of adopting a warrior mindset and not succumbing to victimization. Eric offers personalized coaching to individuals, starting with a thorough understanding of their current situation and symptoms. He focuses on key areas such as sleep, stress levels, and relationships. Eric also discusses the significance of diet, exercise, and various therapies like hyperbaric oxygen therapy, red light therapy, and peptides. He encourages meditation and gratitude practices for overall well-being.Keywordsbrain injury, recovery, TBI, traumatic brain injury, brain coach, hormonal imbalances, neuroendocrinologist, natural supplementation, lifestyle changes, exercise, insurance coverage, lab tests, brain injury, recovery, mindset, coaching, sleep, stress, relationships, diet, exercise, therapies, hyperbaric oxygen therapy, red light therapy, peptides, meditation, gratitudeTakeaways· Addressing hormonal imbalances can be crucial for recovery from brain injury· Working with a neuroendocrinologist who specializes in brain injury can provide personalized treatment plans· Natural supplementation, lifestyle changes, and exercise can help improve symptoms· Navigating insurance coverage for specialized lab tests can be challenging· Adopting a warrior mindset is crucial in overcoming the challenges of brain injury and not falling into a victimization mindset.· Personalized coaching can help individuals navigate the recovery process and achieve better outcomes.· Key areas to focus on include sleep, stress levels, and relationships, as they play a significant role in brain injury recovery.· Diet and exercise are important factors in brain injury recovery, and a balanced approach is recommended.· Therapies such as hyperbaric oxygen therapy, red light therapy, and peptides can be beneficial in accelerating brain injury recovery.· Meditation and gratitude practices can help calm the nervous system and promote cellular repair in the brain and body.Sound Bites"I feel 99.5% better. I feel like I've figured it out.""I'm four years out and I'm still struggling like a lot of us are.""Anxiety, depression... it feels like

Intro After brain injury, some of us are left with limbs and bodies that no longer function the way we are used to. Others have neurologic disorders that do something similar. One condition that does this is called dystonia. Dystonia is a movement disorder that causes muscles to spasm and contract resulting in abnormal postures, twisting, and repetitive movements. In this week's episode, Margaux Galli, the leader of the NYC Dystonia Support Group provides education on dystonia sharing her lived experience with the condition. She offers resources for those suffering with the condition along with information on how to join the support group. Listen to learn more!SummaryIn this episode, Margaux Galli, a member of a dystonia advocacy group, shares her experience living with dystonia, a movement disorder. She discusses the symptoms and causes of dystonia, including involuntary movements, abnormal postures, and tremors. Margaux emphasizes the importance of finding a specialist who listens and understands the condition, as well as exploring different treatment options such as Botox injections and physical therapy. She also highlights the value of peer support and the role of peer-run organizations in providing patient-centered care. Margaux's advocacy work focuses on raising awareness and creating a community for individuals with dystonia. The conversation covers various topics related to dystonia, including the role of physiatrists in treatment, the experience of pain, the challenges of researching complementary therapies, the importance of self-advocacy and support networks, and the impact of dystonia on relationships and identity. The most common theme that arises is the feeling of isolation among individuals with dystonia. Margaux encourages people to join support groups and find healing communities where their voices can be heard.Keywordsdystonia, movement disorder, involuntary movements, abnormal postures, tremors, specialist, treatment options, Botox injections, physical therapy, peer support, peer-run organizations, patient-centered care, advocacy, dystonia, physiatrists, treatment, pain, complementary therapies, self-advocacy, support networks, isolationTakeaways· Dystonia is a movement disorder characterized by involuntary movements, abnormal postures, and tremors.· Finding a specialist who listens and understands the condition is crucial for effective treatment.· Treatment options for dystonia include Botox injections and physical therapy.· Peer support and peer-run organizations play a vital role in providing patient-centered care and creating a sense of community for individuals with dystonia. Physiatrists can help with joint issues and provide injections, but specialized neurospecialists may be needed for certain treatments.· Dystonia can be a painful condition, and pain medication may not always be effective. Medications for mood can also help with involuntary movement.· When researching complementary therapies, it's important to approach alternative treatments safely and consider the risk-benefit ratio.· Self-advocacy and finding a supportive network are crucial for individuals with dystonia.· Dystonia can lead to feelings of isolation, and joining support groups can provide a sense of community and understanding.· It's important to communicate with healthcare providers and ask questions to ensure that your needs are being addressed.· Managing dystonia often involves a combination of approaches,

Introduction A small subset of hemorrhagic stroke survivors never find out what caused their bleeds. This is call perimesencephalic subarachnoid hemorrhage. Although very rare, this episode has three survivors , Alison, Cheryl, and Eryn, who have found each other and have helped each through their recoveries. Having a community that have experienced what you have in your brain really helps you heal. Listen to learn more! SummaryCheryl Divito, Eryn, and Alison discuss their experiences with perimesencephalic subarachnoid hemorrhage (SAH) and the challenges they faced. Cheryl shares her story of experiencing a brain bleed while attending her son's graduation and the subsequent hospitalization and recovery process. They discuss symptoms such as headaches, different-sized pupils, and difficulty walking. The conversation also touches on the lack of understanding and support from medical professionals and the importance of finding a community of survivors who can relate to their experiences. Brain injury survivors with rare subtypes of brain bleeds often feel isolated due to the lack of understanding and support. The medical community may not provide adequate follow-up care or address the ongoing symptoms and concerns of these survivors. It is important for survivors to advocate for themselves and seek out the necessary medical care and support. Coping with the fear of recurrence and focusing on positivity and gratitude can help survivors navigate their recovery journey. In this conversation, Cheryl, Alison, and Eryn discuss their experiences with stroke recovery and the importance of finding support and understanding. They touch on topics such as advocating for oneself, the role of healthcare professionals, the impact of COVID-19 on recovery, the importance of self-care and positive self-talk, and the concept of managing energy levels using the 'spoon theory'. They emphasize the need for a support system and finding a balance between acknowledging and moving forward from the stroke experience.Keywordsperimesencephalic subarachnoid hemorrhage, brain bleed, hospitalization, recovery, symptoms, medical professionals, community, brain injury, isolation, rare subtypes, brain bleed, support, medical care, follow-up, ongoing symptoms, advocacy, fear of recurrence, positivity, gratitude, stroke recovery, support system, advocating for oneself, healthcare professionals, COVID-19 impact, self-care, positive self-talk, spoon theory, managing energy levelsTakeaways· Perimesencephalic subarachnoid hemorrhage (SAH) is a condition where the brain bleeds without a known cause.· Symptoms of perimesencephalic SAH can include severe headaches, different-sized pupils, and difficulty walking.· Medical professionals may downplay the severity of perimesencephalic SAH, leading to a lack of understanding and support for survivors.· Finding a community of survivors who can relate to their experiences can be helpful in navigating the challenges of recovery. Survivors of rare subtypes of brain bleeds often feel isolated due to the lack of understanding and support.· The medical community may not provide adequate follow-up care or address the ongoing symptoms and concerns of these survivors.· It is important for survivors to advocate for themselves and seek out the necessary medical care and support.· Coping with the fear of recurrence and focusing on positivity and gratitude can help survivors navigate their recovery journey. Advocating for oneself is crucial in stroke recovery, as healthcare...

After brain injury returning to your world can be daunting. You feel different, you are different so how do you rejoin your social circles or make new ones? In this episode Alison and Eryn talk about their experiences re-establishing social lives post brain injuries. They provide helpful insights and tips they have learned along the way that really helped. Listen along to this easy going conversation for some lived experience and advice. SummaryIn this conversation, Alison and Eryn discuss how their brain injuries have affected their social lives, fatigue, and time management. They talk about how they used to be constantly on the go before their brain injuries, but now they have to manage their energy levels and prioritize self-care. They also discuss the challenges of socializing and going out with friends, as well as the need for accommodations and modifications in social activities. They emphasize the importance of being present in the moment and accepting their new realities. The conversation explores the importance of finding fulfillment and making a positive impact on the world, rather than solely pursuing traditional goals. It emphasizes the value of meaningful moments and simple pleasures in life. The hosts discuss strategies for reestablishing a social life after a brain injury, including practicing gratitude, being present in the moment, and listening to one's body. They also highlight the significance of emotional regulation, taking rest when needed, and conserving energy. The conversation concludes with a reminder to be kind and compassionate to oneself and to appreciate the beauty of life.Keywordsbrain injury, social life, fatigue, time management, energy levels, self-care, socializing, accommodations, modifications, present moment, fulfillment, positive impact, traditional goals, meaningful moments, simple pleasures, social life, brain injury, gratitude, presence, listening to body, emotional regulation, rest, conserving energy, kindness, compassion, appreciationTakeaways· Brain injuries can significantly impact social life, fatigue, and time management· Managing energy levels and prioritizing self-care are crucial for individuals with brain injuries· Socializing and going out with friends may require accommodations and modifications· Being present in the moment and accepting one's new reality is important for overall well-being. Focus on finding fulfillment and making a positive impact on the world, rather than solely pursuing traditional goals.· Value meaningful moments and simple pleasures in life.· Practice gratitude, be present in the moment, and listen to your body when reestablishing a social life after a brain injury.· Emphasize emotional regulation, take rest when needed, and conserve energy.· Be kind and compassionate to yourself and appreciate the beauty of life.Sound Bites"Before brain injury, it was pretty easy to just go, go, go, go, go, never stop, be the warrior, just push through. But at least for me, that's no longer the case.""I don't have the mental capacity to manage all of that.""I lose my place. I don't remember what I was working on before. I'll stop something midway through then do something else and then never finish that other thing.""Your focus needs to be on how am I going to fulfill myself while also making a positive mark on the world.""Having a car does not affect someone else's life in a positive way.""That's the moment that fulfills your heart, really. That's where inner happiness comes from, I think. That's...

IntroHave you ever thought about how the doctors know what treatments to use to diagnose and treat your brain aneurysm? Research obviously creates this but where does the money come from? A major source of funding comes through public policy and the federal government. The Bee Foundation has a strong presence on Capitol Hill through their work with Arnold and Porter. They are currently working on getting Ellie's Law passed which would be a bipartisan effort earmarking $50 million dollars to go towards research. This funding could prevent others from having a rupture and lead to new treatments and rehab options. Learn how to support passage of this bill here. SummaryIn this episode of the Making Headway podcast, Alison speaks with Christine Kondra, Taylor Cazeault, and Michaela Stogsdill from the Bee Foundation about the critical issues surrounding brain aneurysms. They discuss the foundation's mission, the importance of advocacy and research funding, particularly through Ellie's Law, and the economic implications of brain aneurysms. Personal stories highlight the devastating impact of these conditions, while the conversation emphasizes the need for increased awareness, education, and community engagement to prevent future tragedies. The episode concludes with information on how listeners can get involved through political advocacy and upcoming events for Brain Aneurysm Awareness Month.KeywordsThe Bee Foundation, brain aneurysms, advocacy, Ellie's Law, research funding, awareness, healthcare, economic impact, personal stories, community engagementTakeaways· The Bee Foundation was started to honor those lost to brain aneurysms.· Ellie's Law aims to increase federal research funding for brain aneurysms.· Brain aneurysms affect 1 in 50 people, with a high fatality rate.· Advocacy is crucial for raising awareness and funding for research.· Personal stories of survivors highlight the urgent need for change.· Economic costs of brain aneurysms are significant and preventable.· Education for first responders is essential to improve outcomes.· Bipartisan support is growing for brain health initiatives.· Community engagement is vital for advocacy efforts.· Upcoming events provide opportunities for public involvement.Sound Bites"This is going to be the last.""We really wanted to focus on hope, prevention.""Brain aneurysms are really prevalent."Chapters00:00 Introduction to the Bee Foundation02:59 The Impact of Brain Aneurysms06:11 Advocacy and Legislative Efforts09:01 Ellie's Law and Research Funding11:49 Economic Implications of Brain Aneurysms15:00 Personal Stories and Experiences18:00 The Importance of Awareness and Education21:01 Bipartisan Support for Brain Health24:09 Engaging the Community26:54 Best Practices for Emergency Response29:46 How to Get Involved33:03 Upcoming Events and InitiativesReach out toThe Bee Foundation WebsiteSend a letter to your representatives seeking support or giving thanks using

IntroSo you had the big bad thing happen... and now you have a brain injury. You're in every form of rehab doing the work to build yourself. An often overlooked part of brain injury recovery is finding others who have been there. Connecting with those who have lived experience helps lessen the feelings of isolation that come when your brain is no longer your buddy. In this episode Maddi Niebanck and Tawnie Romero-Golic discuss the power connection has had in their recoveries. We all challenge you to reach out and find a brain injury buddy(ies). It could be the thing that makes the most difference in your mental health post injury!SummaryMaddi and Tawny share their experiences as stroke survivors and advocates in the brain injury community. Maddi discusses her journey with an arteriovenous malformation (AVM) and the decision to undergo brain surgery. She shares the challenges she faced during her recovery, including paralysis and the need for extensive rehabilitation. Tawny emphasizes the importance of putting in the work and the power of community in the healing process. Both Maddi and Tawnie highlight the role of their Instagram Live show in connecting with other survivors and offering support and hope. Tawnie and Maddi discuss their motivations for advocacy and raising awareness about brain injuries. They emphasize the importance of connecting with others who have had similar experiences and the power of sharing stories. They also highlight the role of organizations like TAAF in providing resources and support. The conversation explores the transformative nature of advocacy and the need for community in the recovery process. Tawnie and Maddi provide their contact information for those seeking support and connection.Keywordsstroke, brain injury, arteriovenous malformation, brain surgery, rehabilitation, paralysis, community, support, hope, advocacy, awareness, brain injury, community, support, resourcesTakeaways· The importance of seeking connection and learning from others who have had similar experiences· The power of putting in the work and being proactive in one's recovery· The role of community in providing support and hope· The challenges and triumphs of navigating life after a stroke· Advocacy is driven by the desire to prevent others from experiencing the same challenges and misdiagnoses· Connecting with others who have had similar experiences can provide support and help in finding the right words to describe one's own journey· Working with organizations like TAF can offer additional resources and support for brain injury survivors· Sharing stories and experiences helps to combat the isolation and loneliness often associated with brain injuries· Building a community of support and connection is crucial in the recovery processSound Bites"I had an AVM rupture... I was very much against that.""I'm not just gonna wake up one day and be better, which is what I was thinking. Like I am gonna have to put in the work.""It was like seeking connection and learning from others who have had something similar go on.""I want to raise awareness because I don't want anyone else to go misdiagnosed""We're not alone. That's the big learning, I think, from all of this”"We're stronger together"Chapters00:00 Introduction and Background05:14 Journey with Arteriovenous Malformation and Brain Surgery11:28 Putting in the Work: The...

The third in our brain aneurysm awareness month series does not disappoint! Gia Patel a teenage survivor of a brain aneurysm rupture comes on to talk about her experience and how she transformed it into an educational campaign supporting accurate diagnosis of childhood aneurysms. She also gives advice on storytelling, highlighting its importance for your recovery. Make sure to give this episode a listen and watch her documentary at Beyond a Headache Documentary.SummaryGia Patel, a brain aneurysm survivor, shares her story of experiencing a brain aneurysm rupture at the age of 14. Initially misdiagnosed as a migraine, Gia's symptoms included a thunderclap headache, neck numbness, sensitivity to light and sound, and vomiting. After multiple hospital visits and tests, including a CT scan and lumbar puncture, the brain bleed was finally confirmed. Gia underwent coiling surgery, but 30% of the aneurysm remained. She then had clipping surgery at Barrow Neurological Institute in Phoenix, Arizona, which successfully resolved the issue. Gia also discusses the memory loss and cognitive issues she experienced after the surgery, as well as ongoing headaches and the challenges of finding effective medications. Gia Patel shares her experience with brain aneurysm and the challenges she faced as a teenager. She discusses the difficulties of managing medications and balancing a social life while dealing with the effects of her condition. Gia also talks about the naming of her dog Ellie and the coincidental connection to Ellie's Law, a law advocating for brain aneurysm research funding. She highlights the importance of storytelling and community in raising awareness and supporting survivors. Gia also mentions her documentary, Beyond a Headache, which aims to educate and spread awareness about brain aneurysms.Keywordsbrain aneurysm, rupture, misdiagnosis, migraine, thunderclap headache, sensitivity to light and sound, vomiting, CT scan, lumbar puncture, coiling surgery, clipping surgery, memory loss, cognitive issues, headaches, medications, brain aneurysm, teenager, medications, social life, Ellie's Law, storytelling, community, documentary, Beyond a HeadacheTakeaways· Brain aneurysm ruptures can be misdiagnosed as migraines, so it's important to advocate for further testing if symptoms persist.· Symptoms of a brain aneurysm rupture can include a thunderclap headache, neck numbness, sensitivity to light and sound, and vomiting.· Treatment options for brain aneurysms include coiling and clipping surgeries, but the choice depends on the size and location of the aneurysm.· After brain surgery and aneurysm ruptures, patients may experience memory loss, cognitive issues, and ongoing headaches.· Finding effective medications for post-surgery symptoms can be challenging and may require experimentation.· Managing medications and balancing a social life can be challenging for teenagers with brain aneurysms.· Storytelling is a powerful tool for raising awareness and connecting with others who have similar experiences.· Community support is crucial for brain aneurysm survivors to feel validated and understood.· Gia Patel's documentary, Beyond a Headache, educates and spreads awareness about brain aneurysms.· Early detection and treatment of brain aneurysms can prevent life-threatening complications.Sound Bites"I...

SummaryIn this conversation, Tawnie, an aneurysm survivor, shares her experience of misdiagnosis and delayed treatment. She discusses the symptoms she experienced leading up to her aneurysm rupture and the challenges she faced in getting proper medical attention. Tawnie emphasizes the importance of advocating for oneself and the need for better awareness and understanding of aneurysms. The conversation also touches on topics such as the impact of aneurysms on mental health, THC use, and medication management. Tawnie the Neuro Mermaid shares her experience of having a second brain surgery and how it differed from the first. She discusses advocating for her own treatment and choosing the same neurosurgeon for the second surgery. Tawnie also talks about the anxiety and emotional toll of going through multiple surgeries and the importance of self-care and listening to her body. She explains the concept of being a neuro mermaid and how it represents her neurodivergent identity. Tawnie emphasizes the need to rest and prioritize self-care in the recovery process. In this conversation, Tawnie the Neuro Mermaid and Eryn discuss the importance of self-care and managing symptoms after a brain injury. They talk about the need to prioritize rest, set boundaries, and listen to your body. They also touch on the use of THC for pain management and anxiety, emphasizing the importance of individualized approaches to treatment. Overall, the conversation highlights the challenges and triumphs of navigating life after a brain injury and the importance of finding what works best for each individual.Keywordsaneurysm, misdiagnosis, delayed treatment, symptoms, medical attention, advocacy, awareness, mental health, THC use, medication management, brain surgery, advocacy, anxiety, emotional toll, self-care, neurodivergent, rest, brain injury, self-care, rest, boundaries, THC, pain management, anxiety, individualized treatmentTakeawaysMisdiagnosis and delayed treatment are common challenges for aneurysm survivors, highlighting the need for better awareness and understanding of aneurysms.Advocating for oneself is crucial in getting proper medical attention and treatment.Aneurysms can have a significant impact on mental health, and it is important to address emotional and psychological well-being during the recovery process.The use of THC and medication management are topics that can be explored in relation to aneurysm recovery and symptom management. Advocating for your own treatment and choosing the right healthcare provider is crucial in the recovery process.Going through multiple brain surgeries can cause anxiety and emotional stress, but it's important to prioritize self-care and listen to your body.Being neurodivergent and having a brain injury can heighten emotions and anxiety.Resting and taking care of yourself is essential for recovery, even if it means adjusting your daily routine and expectations. Prioritize rest and self-care to manage symptoms after a brain injury.Set boundaries and listen to your body's needs.Explore different treatment options, such as THC, for pain management and anxiety.Find what works best for you and don't be afraid to advocate for your own health.Sound Bites"I was telling people that I felt like I was dying and something wasn't right. And people weren't listening to me.""Women have such a high threshold, you know, we're built to have children. So yeah, it's supposed to be the worst pain ever, but I think in aneurysm might be worse.""I was like, I'm in excruciating pain, yet no one can help me. And then when you're like, I mean, at one point, I begged them to put the shunt in.""You have a higher purpose. Yeah, someone wants to hear.""We're not messing around with this like half-done stuff like you're putting...

Welcome to brain aneurysm awareness month! For the month of September, Making Headway Podcast and the The Bee Foundation have partnered to provide a month of episodes exploring resources for brain aneurysm survivors and caregivers. We will also be featuring more great survivor stories and advice. Today's episode speaks with Erin Kreszel and Christine Kondra who have dedicated themselves to raising awareness, support, education, advocacy and policymaking after losing a family member to a ruptured brain aneurysm. They also have rock star support groups free for caregivers and survivors. Be sure to check out this episode and their website www.thebeefoundation.org. SummaryErin Kreszel and Christine Kondra from the Bee Foundation discuss their work in aneurysm awareness, advocacy, research, and policy making. They share their personal experiences and the motivation behind starting the foundation. They explain the different treatment options for brain aneurysms, such as clipping and coiling, and the importance of early detection and prevention. They emphasize the need for education and awareness, as well as the role of support groups for survivors and caregivers. The Bee Foundation also advocates for more research funding and policy changes to improve aneurysm care.Keywordsaneurysm, awareness, advocacy, research, prevention, treatment options, support groups, education, early detection, prevention, funding, policy changesTakeaways· The Bee Foundation focuses on aneurysm awareness, advocacy, research, and policy making.· Early detection and prevention are crucial in preventing aneurysm ruptures.· Treatment options for brain aneurysms include clipping and coiling.· Advocacy efforts are needed to improve education, support, and access to care for aneurysm patients and their families.· Support groups play a vital role in providing community and resources for survivors and caregivers.· More research funding and policy changes are needed to advance aneurysm care and prevention.Sound Bites"We didn't want another family to go through what we went through with this experience and started the Bee Foundation with the sole focus of preventing aneurysms prior to rupture.""What should we be asking for in terms of prevention? And then what is it that they do? Like we hear these terms coil, we hear snipping, we hear, you know, clipping.""Advocate for yourself because there is evidence out there that it's genetic and right now the insurance says two or more people and you can get an MRA to look for an aneurysm but we know if you have one person in your family you should be advocating to get an MRA, there's no reason to wait for two."Chapters00:00 Introduction and Background of the Bee Foundation03:11 Preventing Aneurysms Prior to Rupture07:50 Understanding Treatment Options: Clipping and Coiling13:19 Advocating for Education, Support, and Access to Care19:04 The Power of Support Groups for Survivors and Caregivers26:38 The Need for More Research Funding and Policy ChangesReach out to:www.thebeefoundation.org for support groupshttps://www.thebeefoundation.org/advocacy-toolkit/: Ellie's law advocacyThe Bee Foundation on IG:

IntroductionThis is the episode we have been searching for! We highly recommend it for anyone struggling to get the recovery results they hope for post brain injury. In today's episode, Aaron Cloutier, Doctor of Chiropractics and Anna Blash an Upledger trained craniosacral therapist, massage therapist, and somatoemotional release expert guide us on alternative treatments that actually work! The two of them specialize in assisting brain injured folks in their healing. This is a content heavy episode, but offers a wealth of knowledge and education that will help you recover. It is worth the listen, even if it takes you a few sessions to get through the whole thing. Take notes and reach out to them for more information. SummaryIn this episode, Aaron Cloutier and Anna Blash, a brain injury power couplespecializing in brain management and craniosacral therapy, discuss the anatomyand physiology of concussions, the role of supplementation in the healingprocess, and the intricacies of craniosacral therapy. They highlight theimportance of understanding the spinal dynamics and cranial vault in relationto concussions and how chiropractic and craniosacral therapy can becomplementary treatments. The conversation touches on supplementation, the needfor individualized dosing, and the importance of consulting with healthcareprofessionals when incorporating supplements into a treatment plan. They alsotouch on the importance of rest and the integration of body, mind, and spiritin the healing process. Anna shares case studies that highlight the power ofsomatoemotional release in craniosacral therapy. They emphasize the individualnature of healing and the need for a holistic approach that addresses thephysical, emotional, and spiritual aspects of recovery. Keywordsconcussion management, craniosacral therapy, anatomy, physiology, supplementation, spinal dynamics, cranial vault, chiropractic, craniosacral therapist, magnesium, fish oil, inflammation, dosing, healthcare professionals, healing, traumatic brain injury, rest, integration, somatoemotional release TakeawaysUnderstanding the anatomy and physiology of concussions is crucial in developing effective treatment protocols.Chiropractic and craniosacral therapy can be complementary treatments for concussions and all brain injury types, addressing both spinal dynamics and cranial vault issues.Magnesium supplementation is important for brain health and energy production, andmagnesium glycinate is a well-absorbed form to consider.Fish oil, particularly DHA, is neuroprotective and supports brain health, but it'simportant to choose a high-quality brand that is third-party tested.Supplementation should be individualized and discussed with healthcare professionals,especially when taking other medications. Craniosacral therapy is a light touch whole body treatment technique that supports andnourishes the central nervous system, reducing pain, stress, and enhancing health and wellbeing.Somatoemotional release is a component of craniosacral therapy that focuses on releasing emotional energy stored in the body, which can have a profound impact onhealing from traumatic brain injuries.Rest is crucial for healing from brain injuries, and it is important to find ways toachieve true rest and relaxation, such as through meditation, painting,gardening, or other activities that bring a sense of grounding and stillness.Healing from brain injuries requires a holistic approach that addresses the physical,emotional, and spiritual aspects of recovery, and it is important to...

Did you know, 10% of people in the US under the age of 45 experience having a stroke? In this episode, Alison and Eryn interview of childhood survivor of AVM rupture, Andrew Penarubia. Andrew is the one and only intern for Making Headway Podcast. His claim to fame didn't start there though. Since being left with only one fully functioning hand he has taught himself how to game, play instruments, and sink threes on the court. Being such a young survivor, Andrew grew up with different abilities; many saw his strengths but some chose to bully his weaknesses. He speaks to the challenges of growing up different while providing light and hope. Stay tuned until the end as he showcases his one-handed ukulele skills, doing the first live musical performance MHP has ever had. Keywords AVM, survivor, intern, gaming, physical disabilities, hospital, support, school, brain injury, stroke, recovery, walking, disability, social life, bullies, music, faith, inspiration TakeawaysAndrew Penrubia is a survivor of AVM and shares his story of recoveryDespite physical disabilities, Andrew has learned to do things with one hand, including gaming and playing musical instrumentsAndrew received a lot of support from family, friends, and even strangers during his hospitalizationHe returned to school after a few months and continued his education Living with a brain injury requires resilience and determination to overcome challenges.Support from friends and family is crucial in the recovery process.Finding joy and pursuing passions can help in coping with a disability.Music and faith can provide solace and inspiration in difficult times. Sound Bites"Oh hi everyone. I'm Andrew, the 21 year survivor for this AVM.""Yes, yes, yes, Super Nintendo, yes, yes. Yeah, we can get along. We're gonna get along.""His blood pressure is over 200 and then we can't see anything due to all the bleeding in his brain. So all we can do is put him in a respirator to die slowly and make sure you make your peace with him right now and we're going to make it comfortable for him.""So you went home walking, kinda sorta.""Hey, you know, that show Walking Dead, I started that.""You are the original zombie." Chapters00:00Introduction and Andrew's Background01:36Surviving AVM and Gaming with One Hand07:19The Power of Support and Prayer12:06Hospital Experience and Rehabilitation17:25Returning to School and Overcoming Challenges19:19The Shock of the Stroke and the Road to Recovery20:11Dealing with Bullies and Finding Support23:14Gaining Movement and Discovering Passions26:18Music and Faith: Sources of Inspiration32:07Andrew's Musical Talent: Playing with One HandReach out to:Andrew on IG @just4ukeAndrew on You Tube https://www.youtube.com/@LeftOutieEryn on IG @eryn_makingheadwaypodcastAlison on IG @alison_maknigheadwayodcastMHP on IG @makingheadwaypodcast Go to our website www.makingheadwaypodcast.com for full show...

Feeling isolated after your diagnosis? Finding your tribe is life altering and tremendously helpful in facilitating your treatment and recovery from brain surgery and bleeds. TAAF is The Aneurysm and AVM Foundation, a foundation focused on supporting brain bleed survivors, grieving families, caregivers, and research. In this episode, Eryn interviews Dina Chon, the executive director of TAAF. The two discuss the mission and work of TAAF which supports individuals who have experienced brain bleeds and provide resources and information to the community. SummaryDina shares the history of the TAAF Foundation and how it has grown over the years. They also talk about the importance of acknowledging and embracing all emotions, not just happiness, in the healing process. In this conversation, Dina Chon discusses her personal experience with her mother's brain aneurysm and how it led her to leading The Aneurysm and AVM Foundation. She shares the importance of support groups and the impact they can have on survivors and their families. Dina also highlights the various programs and resources offered by TAAF, including brain buddies, fundraising events, and research grants. She emphasizes the power of community and the role of TAAF in providing support, education, and advocacy for those affected by brain aneurysms and AVMs. Keywordsbrain bleeds, Aneurysm and AVM Foundation, TAAF, support, resources, emotions, healing, brain aneurysm, AVM, support groups, TAAF, The Aneurysm and AVM Foundation, brain buddies, fundraising events, research grants, community, support, education, advocacyTakeawaysThe Aneurysm and AVM Foundation (TAAF) is an organization that supports individuals who have experienced brain bleeds and provides resources and information to the community.TAAF was founded by a neurosurgeon and his nurse who wanted to do more for patients beyond medical treatment.TAAF offers support groups and resources for individuals and families affected by brain bleeds.It is important to acknowledge and embrace all emotions, not just happiness, in the healing process. Support groups can provide a sense of community and understanding for survivors and their families.The Aneurysm and AVM Foundation (TAAF) offers various programs and resources, including brain buddies, fundraising events, and research grants.TAAF focuses on research, programming, and providing support to survivors and their families.Fundraising is essential for TAAF to continue its work in supporting and advocating for those affected by brain aneurysms and AVMs.Getting involved with TAAF, whether through fundraising or participating in support groups, allows individuals to give back and help others in the community.Sound Bites"If it bleeds, TAAF leads.""I would literally program myself to work all day and help people 24 hours.""I am non-robot for sure.""My mom was lying in the bathroom. She'd gotten up to use the restroom, I'm assuming, and she'd ruptured.""She opens her eyes and she looks at me and she tells me she loves me. And she passes out and she dies.""We're going to be like you."Chapters00:00Introduction and Starting the Conversation03:19The History and Growth of TAF08:03Dina's Journey to TAF12:16The Role of TAF in Serving the Community14:24Embracing All Emotions in the Healing Process18:04Supporting Individuals at Every Stage22:54Personal Experience with Brain Aneurysm28:44The Importance of Support Groups32:40Programs and Resources Offered by TAF36:53Fundraising for Research and Support45:17Getting Connected with TAFReach out toEryn on

SummaryDid you know there are more than 5.3 million individuals in the U.S who are living with a permanent brain injury-related disability? That's 1 in every 60 people. In today's episode, Eryn updates everyone on where she has been and how she has been doing over the past few years. She shares with us her struggle with depression, the impact of Covid-19 on her symptoms, and her journey finding peace and serenity post-brain trauma. Further on, we have Alison who shares her experiences with anxiety, finding tranquility in nature, and the role of faith in guiding her journey. Both Eryn and Alison discuss their experiences with nature, spirituality, and the serendipitous connection that brought them together. They also share their challenges with healthcare, the importance of gratitude, and the need for self-advocacy in their recovery journeys.Keywordsbrain injury, depression, COVID-19, serenity, peace, nature, anxiety, coping, faith, nature, spirituality, serendipity, healthcare challenges, gratitude, self-advocacy, recovery journeyTakeawaysLiving with a brain injury involves ongoing challenges and adjustments, including managing symptoms of depression and anxiety.The impact of COVID-19 on brain injury symptoms can be significant, leading to a resurgence of cognitive and physical challenges.Finding serenity and peace after a brain injury often involves exploring new hobbies and activities, such as spending time in nature and engaging in relaxing experiences.The role of faith and spirituality can play a significant part in guiding the journey of recovery and adaptation after a brain injury. Nature serves as a source of peace and spiritual connection for Eryn and Alison.The serendipitous connection between Eryn and Alison has been a significant support in their recovery journeys.Challenges with the healthcare system have led Eryn and Alison to prioritize self-advocacy and explore alternative approaches to healing.Gratitude plays a crucial role in finding happiness and appreciation for the simpler things in life.Sound Bites"I'm more at peace and find the tranquility and the serenity that I need, that I crave, like in nature, outside...""Nature's more like my religion, I would say, than going to church or doing something more formal.""It was God, the universe, whatever you want to believe, higher power, um, agnostic. It was nothing. It was just us finding each other.""Gratitude is the key to happiness."Chapters00:00Finding Serenity and Peace After a Brain Injury26:23Nature's Spiritual Connection30:00Serendipitous Connections and Support40:03Navigating Healthcare ChallengesReach out to:Eryn on IG @eryn_makingheadwaypodcastAlison on IG @alison_maknigheadwayodcastMHP on IG @makingheadwaypodcast Go to our website www.makingheadwaypodcast.com for full show notes and resourcesSupport us at:PatreonDonate section on our website. 49:48The Power of Gratitude and Self-Advocacy

IntroWelcome Back! Season Three is starting strong with a kick ass survivor and our new co-host Alison House. In today's episode, both Alison and Eryn go over their experiences as well as the many obstacles they face as stroke survivors. They share their experiences on how standing firm in their faith, showing gratitude, and spending time in nature along with engaging in relaxing activities, all played huge roles in their cognitive as well as mental recovery from brain bleeds.SummaryAlison shares her experience of having a brain aneurysm and the symptoms she experienced leading up to it. She discusses her time in the hospital, including being in the ICU and the challenges she faced during her recovery. Alison also talks about the support she received from her loved ones and the impact the experience had on her relationship with her son. She mentions the medical procedures she underwent and the ongoing symptoms she continues to deal with. In this conversation, Alison and Eryn discuss their experiences with brain injuries and the challenges they faced during their recoveries. They talk about the symptoms they experienced, such as brain fog and memory loss, and the impact it had on their daily lives. They also discuss the importance of self-advocacy and finding support during the recovery process. Alison shares how her faith and connection with nature helped her find strength and inner peace. Overall, the conversation highlights the resilience and determination of individuals living with brain injuries.Keywordsbrain aneurysm, perimesencephalic subarachnoid hemorrhage, symptoms, hospital, ICU, recovery, support, medical procedures, ongoing symptoms, brain injury, recovery, symptoms, brain fog, memory loss, self-advocacy, support, faith, nature, resilienceTakeaways• Symptoms of a brain bleed can include headaches, fatigue, dizziness, and changes in vision.• Recovery from a brain bleed can involve time in the ICU and step-down units, as well as physical therapy.• Having a strong support system, including loved ones and healthcare professionals, is crucial during the recovery process.• Medical procedures such as angiograms may be used to diagnose and treat brain aneurysms and other types of bleeds• Ongoing symptoms such as memory loss, brain fog, and sensitivity to light and sound can persist after a brain bleed. Brain fog is a common symptom of brain injury, characterized by a fuzzy and staticky feeling in the mind.• Self-advocacy is crucial during the recovery process, as individuals may need to seek out appropriate care and support.• Finding support from friends, family, and community organizations can greatly impact the recovery journey.• Connecting with nature and finding inner strength can help individuals navigate the challenges of brain injury.• Resilience and determination are key in overcoming the physical and emotional obstacles of brain injury.Sound Bites• "I'm so excited to be your new co-host and just looking forward to all of our adventures and episodes and looking really forward to sharing my story with everyone today."• "I had some headaches that didn't go away. A lot of fatigue to the point where I was napping daily, which I'm normally not a...

SummarySeason 3 of the Making Headway podcast is about to begin!! Fun things are in store as there is a new co-host joining Eryn. Welcome Alison House! Both Eryn and Alison are brain injury survivors and nurses, bringing a unique perspective to the show. They will continue to interview brain injury survivors who have achieved amazing things in their lives, as well as practitioners who can provide resources and support. The hosts emphasize the importance of community and reaching out for help. The podcast aims to inspire and bring hope to others who have experienced brain injuries.Keywordsbrain injury, podcast, co-host, nurses, survivors, community, resources, support, inspiration, hopeTakeawaysSeason 3 of the Making Headway podcast is starting with a new co-host, Alison, who is also a brain injury survivor and nurse.The podcast will continue to feature interviews with brain injury survivors who have achieved great things in their lives.The hosts emphasize the importance of community and reaching out for support.They will also bring on practitioners to provide resources and information for brain injury survivors.TitlesSeason 3 Begins with a New Co-HostThe Power of Community and SupportSound Bites"Keep moving forward.""There's so many avenues to cover.""I have missed the community so much."Chapters00:00Introduction and Announcement of Season 304:24The Focus on Brain Injury Survivors10:15Encouraging Others to Move Forward

Our last episode of the podcast is definitely not the least! We've heard from so many of our listeners and have personally experienced just how much brain injuries can affect our mental health.  From overstimulation to irritability; emotionality to anxiety; impulsiveness to depression; brain injuries really change how our minds work! In this episode, BrainStorm for Brain Injury's Dr. Judy Gooch and Tyanne Crook talk about mental health post injury and where you can go for help.  I know I was nodding right along with this one and raising my hand.  This episode really helped me feel less alone, maybe it will for you too! Links to any resources mentioned:  https://brainstormforbraininjury.com/index.html (BrainStorm for Brain Injury) Brain Injury Alliance:  Search online for your state's name and ‘brain injury alliance' https://www.biausa.org/find-bia (Brain Injury Association: Find your BIA) https://www.facebook.com/groups/423867728219969/about/ (Brainstorm for Brain Injury Facebook support group) Reach out to: https://www.instagram.com/brainstormforbraininjury/ (BrainStorm for Brain Injury on IG) https://twitter.com/forbrainstorm (Brain Storm for Brain Injury on Twitter) https://www.facebook.com/BrainStormforbraininjury/ (Brain Storm for Brain Injury on Facebook) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  NeuMind is looking to build a platform to support brain injury survivors and caregivers through rehabilitation.  They are looking for survivors and caregivers to give feedback.  Help them help others: https://neumind-25091012.hs-sites-eu1.com/rc-landing-page?referral=makingheadway (neumind.co.uk/makingheadway) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment

Are you looking for community post brain injury?  Are you trying to develop and become the new you? Do you need support? Look no further than Heal the Brain.  Heal the Brain is a non profit offering active, virtual experiences that empower survivors with practical resources and social support.  Through their workshops, Heal the Brain connects brain injury survivors and their caregivers with skilled clinicians and survivor mentors.  In this episode, founder Jane Connely explains all this amazing community has to offer to help you connect, grow, develop, and live life fully post injury.  This is a resource that you won't want to miss out on.  Listen today to learn more! Links to Resources mentioned: Heal the Brain Workshops: https://healthebrain.org/workshops (https://healthebrain.org/workshops)  No Brainer Podcast: https://healthebrain.org/nobrainerpodcast (https://healthebrain.org/nobrainerpodcast)  Reach out to: Visit Heal the Brain at https://healthebrain.org/ (https://healthebrain.org/).  We encourage everyone to sign up and be a part of their mission.  Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  NeuMind is looking to build a platform to support brain injury survivors and caregivers through rehabilitation.  They are looking for survivors and caregivers to give feedback.  Help them help others: https://neumind-25091012.hs-sites-eu1.com/rc-landing-page?referral=makingheadway (neumind.co.uk/makingheadway) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook).  HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Recovering from post concussion symptoms? Then we don't need to tell you how challenging that can be.  Melissa Biscardi, osteopath and registered nurse joins us from the Rehab Lab to talk about recovery.  In her practice, she focuses on treating concussion through movement, vestibular training, nutrition, and mental health.  Listen to learn about treatment, common myths, and what to do instead. Links to any resources mentioned:  The Brain Tool Kit app: https://www.braintoolkit.ca/ (Braintoolkit.ca)  Reach out to: Melissa of the Rehab Lab: For care in Toronto Canada or to learn more about the Rehab Lab: https://www.rehablab.ca/ (https://www.rehablab.ca/) Follow her on Instagram https://www.instagram.com/the.rehab.lab/?hl=en (@the.rehab.lab) Feel free to reach out if you are having trouble finding a practitioner near you.  She will help connect you to someone.  Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  NeuMind is looking to build a platform to support brain injury survivors and caregivers through rehabilitation.  They are looking for survivors and caregivers to give feedback.  Help them help others: https://neumind-25091012.hs-sites-eu1.com/rc-landing-page?referral=makingheadway (neumind.co.uk/makingheadway) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment

After your brain injury, have you felt scarred by the medical community?  Do you feel yourself pulling away from others, having intrusive thoughts, avoiding medical appointments, having increased anxiety about your health, or having trouble focusing on your appointments? You may be experiencing Medical PTSD.   In today's episode we have Emily Parks who is a patient advocate, behavioral health specialist, and founder of POP! Medical PTSD.   POP! provides a safe space to validate your experience and learn more about what others are doing to overcome medical PTSD.  Emily is groundbreaking in developing the definition of medical PTSD and increasing awareness that people can become traumatized by going through the healthcare system or by experiencing a medical event. She gives advice on communicating with healthcare providers and getting through trauma.  Listen today to learn more about this important topic! Reach out to: POP! Medical PTSD and Emily Parks https://www.popmedicalptsd.org/ (https://www.popmedicalptsd.org/) Instagram: https://www.instagram.com/pop_medicalptsd/ (POP_medicalPTSD) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  NeuMind is looking to build a platform to support brain injury survivors and caregivers through rehabilitation.  They are looking for survivors and caregivers to give feedback.  Help them help others: https://neumind-25091012.hs-sites-eu1.com/rc-landing-page?referral=makingheadway (neumind.co.uk/makingheadway) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

At Making Headway Podcast, we love to talk with people about different tools in their recovery toolbox.  In today's episode, we talk with TBI survivor Adrian Treadway.  She shares her experience with using CBD as a recovery aide. Adrian has found CBD assists with pain, sleep, focus, and mental clarity.  Learn tips from Adrian, the CBD connoisseur, on how she found the best CBD product for her. Links to any resources mentioned:  Book: https://amzn.to/3xUonXs (Weed Mom) by Danielle Simone Brand Reach out to: Adrian on IG https://z-p42.www.instagram.com/howweedsave/ (@howweedsave) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  NeuMind is looking to build a platform to support brain injury survivors and caregivers through rehabilitation.  They are looking for survivors and caregivers to give feedback.  Help them help others: https://neumind-25091012.hs-sites-eu1.com/rc-landing-page?referral=makingheadway (neumind.co.uk/makingheadway) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Using our Amazon links to buy products gives us a small kickback.  Thank you for your support! https://amzn.to/3xUonXs (Weed Mom) by Danielle Simone Brand Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook).  HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Did you think you had heard of all the different types of therapy by now? We just discovered one more– craniosacral therapy!  Craniosacral works with the body's innate ability to self correct to homeostasis. It is a tool of consciousness helping you connect with your energy and your body's ability to heal.   Amy Mercury's role as a craniosacral therapist allows her to observe your body's energy state.  She helps you gain perspective on how your thoughts and beliefs impact your body.  It is a truly unique process that celebrates your wholeness.  Regain regulation and a sense of calm through craniosacral therapy! Reach out to: Contact Amy and let her know that you listened for a special treatment session rate.  She is also available to answer any questions.   https://www.amymercury.com/ (amymecury.com) Email: amy@amymercury.com Instagram: https://www.instagram.com/transformomma.amy.mercury/ (@Transformomma.amy.mercury) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  NeuMind is building a platform to support brain injury survivors and caregivers through rehabilitation.  They are looking for survivors and caregivers to give feedback.  Help them help others at: https://neumind-25091012.hs-sites-eu1.com/rc-landing-page?referral=makingheadway (neumind.co.uk/makingheadway) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Recovering from a brain injury is a physically and emotionally trying time.  Addressing both your physical and mental health helps you get the most out of your therapy.  Dr. Nidhi Shah, physical therapist fromYour Movement Specialist knows this all too well.  In this week's episode, Nidhi gives us tips to ground ourselves, strategies for better sleep, and teaches us about some common symptoms we may not associate with our brain injuries. Listen and learn! Links to any resources mentioned:  https://www.makingheadwaypodcast.com/episodes/episode-8-your-spin-doctor-vestibular-therapy-with-emily-beus-dpt (Vertigo and dizziness episode) on MHP Reach out to: Dr. Nidhi Shah at email: nidhi.shah@yourmovementspecialist.com Phone: 609-726-6003 https://yourmovementspecialist.com/ (https://yourmovementspecialist.com/)  https://www.instagram.com/yourmovementspecialist/?hl=en (@yourmovementspecialist) on Instagram Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Boom! You have a brain injury.  Life as you knew it is forever changed.  Your brain injury is a time of rebirth; a time to become something greater.  Kyle Mengelkamp of Stroke of Genius joins us in this episode to talk about our potential.  He introduces the concepts of resilience, mentorship, perseverance, vulnerability, and curiosity for all your life can be.  There is life after injury and it is limitless! Listen for more inspiration and resources to help you move forward. Links to any resources mentioned:  https://www.shareyourstrokeofgenius.org/press (Roadtrip videos) Reborn Decades Apart: attend https://www.shareyourstrokeofgenius.org/premiere (screenings here) https://www.shareyourstrokeofgenius.org/the-lobby (Brain Bar) Reach out to: http://www.shareyourstrokeofgenius.org (www.shareyourstrokeofgenius.org) https://www.instagram.com/shareyourstrokeofgenius/ (Instagram) and https://www.facebook.com/shareyourstrokeofgenius/ (Facebook) @shareyourstrokeofgenius Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/) Free webinar, Say Goodbye to Persistent headaches: http://www.headacheshandled.com/training (www.headacheshandled.com/training)  Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Using our Amazon links to buy products gives us a small kickback.  Thank you for your support! Books by Dr. Jill Bolte Taylor: https://amzn.to/3u0uvuP (Whole Brain Living) and https://amzn.to/3LTQU3p (My Stroke of Insight ) Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Struggling with debilitating headaches? Have migraines taken over your life? There is hope beyond medications or elimination diets!  Fasting has the potential to decrease brain fog, increase alertness, repair neurons, improve gut health, eliminate headaches and more.  Today, Susannah Juteau MSc, CLT, RD talks with us about the benefits of therapeutic fasting for brain health and headache relief.  Susannah's Headaches Handled program is a dietician guided, group approach to having a healthy diet that incorporates therapeutic fasting.  Listen to this episode to learn if this strategy is for you! Links to any resources mentioned:  Susannah's https://www.makingheadwaypodcast.com/episodes/episode-12-the-headache-nutritionist-with-susannah-juteau-m-sc-rd (episode) on healthy eating for your brain Dr. Satchin Panda: https://www.salk.edu/scientist/satchidananda-panda/ (https://www.salk.edu/scientist/satchidananda-panda/)  Reach out to: Susannah Juteau: IG @headachenutritionist or email at info@headachenutritionist.com The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/) Free webinar, Say Goodbye to Persistent headaches: http://www.headacheshandled.com/training (www.headacheshandled.com/training)  Next Headaches Handled Group coming in April, 2022 Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Managing emotions can stump anybody.  The ante is upped post injury since trouble regulating our emotions is a common side effect of brain injury.   Elle Gargano and Eryn talk about their struggles and lessons learned through their experiences with emotional dysregulation.  They get into it all; the anxiety, the ‘tantrums,' trauma responses, and panic along with strategies they've found to be helpful in managing emotions.  This talk is an open and honest expression on what it is like living with emotional dysregulation; join us to learn and empathize. Links to any resources mentioned:  https://www.makingheadwaypodcast.com/episodes/episode-number-37-survivor-story-blessings-hidden-in-the-moments-with-elle-gargano (Elle's first episode) on Making Headway Podcast https://www.makingheadwaypodcast.com/episodes/episode-21-facing-fatigue-with-jenn-freeburn-cognitive-therapist (Jennifer Freeburn's episode) on fatigue http://wecandohardthingspodcast.com/ (We Can Do Hard Things) podcast Reach out to: https://www.instagram.com/ellegargano/?hl=en (Ellegargano) on Instagram https://www.ellegargano.com/ (Ellegargano.com) https://www.instagram.com/brave_the_label/?hl=en (brave_the _label )on Instagram https://bravethelabel.com/ (bravethelabel.com) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/) Free webinar, Say Goodbye to Persistent headaches: http://www.headacheshandled.com/training (www.headacheshandled.com/training)  Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Using our Amazon links to buy products gives us a small kickback.  Thank you for your support! https://amzn.to/3IrFlOL (Untamed by Glennon Doyle) Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Depression is so real for many of us post injury.  It robs us of feeling joy and part of life. It takes tremendous courage and strength to persevere and feel your sense of worth again.  In today's survivor story, Brooke talks about how he was able to reinvent himself post injury all while dealing with depression.  He has used his experience to increase public safety around cautious driving all while conquering new skills like public speaking and long distance charity runs. His approach to recovery has helped others and has strengthened his mental health.  If you're looking for some inspiration to spark your next endeavor, look no further; take a listen! Links to any resources mentioned:  https://www.cfglaw.co.uk/brain-injury-bites (Brain Injury Bites) podcast  https://www.cfglaw.co.uk/blog/author/brooke-trotter (Blogs by Brooke) on CFG Law along with blogs by others https://www.headway.org.uk/about-brain-injury/individuals/brain-injury-and-me/podcast-life-with-no-filter/ (Life with No Filter) podcast Reach out to: Braininjurybrooke on https://m.facebook.com/pg/braininjurybrooke/posts/ (Facebook) and https://www.instagram.com/brain_injury_brooke/?hl=en (Instagram) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/) Free webinar, Say Goodbye to Persistent headaches: http://www.headacheshandled.com/training (www.headacheshandled.com/training)  Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Struggling to feel energized and well post brain injury?  Are you finding that you process and think differently? Michelle Rusk of Coastal Speech Therapy and Wellness addresses all of these things through providing speech therapy with a wellness coach's touch.  Not only can she address apraxia, aphasia, cognitive and executive function issues, but her focus on holistic wellness coaching allows her to look at how hormonal changes impact your biology, social, psychological, and spiritual health.   Join us in this episode to hear more about her multi-pronged approach.  Learn about hormonal influences on your brain and how testing and lifestyle adjustments could affect you for the better.   Links to any resources mentioned:  https://www.makingheadwaypodcast.com/episodes/episode-23-hormonal-havoc-imbalance-after-injury-with-dr-tamara-wexler-neuroendocrinologist (Episode 23: Hormonal Havoc: Imbalance after Injury with Dr. Tamara Wexler, Neuroendocrinologist) SPECT scans By Dr. Amen at https://www.amenclinics.com/brain-health/brain-scans-3/?gclid=CjwKCAiA1JGRBhBSEiwAxXblwVBVCvHIS_AfW0JhSAA4xQcKlI4wmjtJTfhQJY5kK5whsSRLNOO3CRoCJUYQAvD_BwE (Amen clinics) https://www.erinholthealth.com/ (Erin Holt: Funk'tional Nutrition Podcast) Reach out to: Michelle Rusk at: Coastal Speech Therapy and Wellness. Call at 757-529-0600 http://www.coastalstw.com (www.coastalstw.com) Instagram: https://www.instagram.com/coastalspeechtherapy/?hl=en (@coastalspeechtherapy) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/) Free webinar, Say Goodbye to Persistent headaches: http://www.headacheshandled.com/training (www.headacheshandled.com/training)  Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

Are you looking for ways to increase your brain health but are unsure of where to start? In this week's episode of Making Headway Podcast, Heather Van Tassel from Neuro Fit for Life joins us to talk about the 4 pillars of brain health and concussion recovery.   Her approach to coaching people back to wellness post injury includes mindset, nutrition, exercise, and alternative therapies. The episode ends with a guided meditation. Join us to learn more and get started on your road to better brain health.    Reach out to: Heather Van Tassel on https://www.instagram.com/neurofitforlife/ (Instagram @neurofitforlife) On https://www.facebook.com/neurofitforlife/ (Facebook @neurofitforlife ) Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/) Free webinar, Say Goodbye to Persistent headaches: http://www.headacheshandled.com/training (www.headacheshandled.com/training)  Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Support us at: https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

The last in our series on relationships is definitely not the least!  This week we talk with Felice LaZae and Joe Borges from the NeuroNerds podcast.  They share the wisdom they have gained that came out of the trauma.  From gaining perspective on priorities to reprogramming old ways of being that no longer work for you, Joe and Felice touch on it all.  Don't miss out on this heartwarming conversation with 2 rock stars in the community! Links to any resources mentioned:  https://m.facebook.com/groups/yousorock/ (You So Rock group )on facebook  NH Brain Injury Association https://bianh.org/support-groups (caregiver support group)  https://www.clubhouse.com/club/the-neuronerd-networ (Neuronerds Network) every Wednesday 6pm PST check in with everyone one how they are doing  https://www.clubhouse.com/club/the-neuronerd-networ (Neuronerds Network) every Friday 6pm PST talking about life after brain injury https://www.theneuronerds.com/ (Neuronerds podcast): Look for Thoma Meja part one and two to listen to the episode referenced in this show Reach out to: Joe on https://www.instagram.com/joesorocks/?hl=en (IG) https://www.instagram.com/joesorocks/?hl=en (@joesorocks ) https://www.instagram.com/theneuronerds/?hl=en (@theneuronerds on IG) and https://www.facebook.com/theneuronerds/ (Facebook)  Felice on https://www.instagram.com/felicelazae/?hl=en (IG @felicelazae) Coaching with Joe: https://www.yousorock.coach/ (YousoRock.coach) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/)  Free webinar, Say Goodbye to Persistent headaches: http://www.headacheshandled.com/training (www.headacheshandled.com/training) Using our Amazon links to buy products gives us a small kickback.  Thank you for your support! https://amzn.to/35cw9zx (4 Hour Work Week) by Timothy Ferriss Support us at:  https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher) https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate,...

The second in our series on relationships; Ryan and Anna Teal come on to share their journey. Ryan suffered a stroke that caused apraxia and aphasia.  He and Anna have worked together as a couple to establish new communication patterns and roles within their relationship. They are a shining example of how a willingness to flexibly support each other forged them into a stronger unit that moves forward together.  Their experiences led them to a new purpose, helping adults with aphasia.  This has led them to create https://amzn.to/34uVODT (Aphasia Readers), a workbook for adults looking to practice reading aloud to improve their speech. Join us in this episode to learn more about their recovery path, how they are giving back, aphasia tips, and the things that keep them strong as a couple experiencing the wake post stroke.  Links to any resources mentioned:  Apps for aphasia: Otter, Tactus, Phonics, Grammerly, Google recorder> search on your app platform https://aphasiareaders.com/ (Aphasiareaders.com): for fridge functional phrases and and to buy the book Reach out to: Ryan and Anna on Email: Info@aphasiareaders.com Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/)  Using our Amazon links to buy products gives us a small kickback.  Thank you for your support! https://amzn.to/34uVODT (Aphasia Readers on Amazon) Support us at:  https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

February.  The month of commercialized love aka Valentines Day.  While buying chocolates and teddy bears is a questionable way to show you love someone; it is a good reminder that we need to show support and be vocal about appreciating those who love us, especially those who have stood by us in our worst moments.   Brain injury is a unique circumstance in a relationship where roles change quickly.  Suddenly an independent partner has increased needs and the significant other becomes a caregiver.  This is a really hard time for the survivor and spouse.  This month, we talk with some amazing couples who have stuck together through the hard times.  A true in sickness and in health test.   For our first in the series, stroke survivor Tymiak and his beautiful wife Rachel Hawkins provide their perspectives on what was needed for their relationship to thrive post injury.  Join us as we listen to them converse about communication, mindfulness, honesty and the roles they play in keeping a solid relationship post brain injury.  Links to any resources mentioned:  Becoming the Light: Navigating the Darkness after Stroke by Tymiak Hawkins.  https://tymiakhawkins.com/ (Buy here.) Reach out to: Tymiak on IG https://www.instagram.com/twothet2.0/ (@twotheT2.0) Tymiak on facebook https://www.facebook.com/tah989 (@tymiakamirhawkins) http://www.tymiakhawkins.com (www.tymiakhawkins.com): free guide for survivors and caregivers.  Buy the book http://www.tymiakhawkins.com (here) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/)  Using our Amazon links to buy products gives us a small kickback.  Thank you for your support! Buy Tymiak's book on Amazon using https://amzn.to/3osun4k (this link.) Support us at:  https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher)   https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). HELP US SPREAD THE WORD! If you dug this episode, kindly leave us a rating, a review, and subscribe! Visit the Making Headway Podcast website at www.makingheadwaypodcast.com to learn more about Eryn and Mariah and our journey to podcasting. Follow us on Instagram: instagram.com/makingheadwaypodcast Follow us on Facebook: Facebook.com/makingheadwaypodcast Follow us on Twitter: twitter.com/makingheadwaypo As an Amazon Associate, Making Headway may earn from qualifying...

What can we say about Michael Shutt??  His kindness and compassion shine through in this heartwarming interview.  Michael is a three-time, over-achieving stroke victim.  He used his experience to write one of the most powerful depictions of stroke and what it is like to recover from one that I have ever heard.  His one man show, A Lesson in Swimming, is a radio, soon to be live, show that you won't want to miss.  Join us in this episode to learn more about the man behind the show. We touch on many important lessons that stroke has taught us both.  I know you will leave inspired and ready to find your community!    Links to any resources mentioned:  A Lesson in Swimming: https://www.alessoninswimming.com/ (michaelshutt.com), https://podcasts.apple.com/us/podcast/a-lesson-in-swimming-radio-play/id1595659837 (Apple podcasts), https://www.alessoninswimming.com/ (alessoninswimming.com)  https://www.clubhouse.com/club/the-neuronerd-networ (Neuro Nerd Network )on Clubhouse Wednesdays and Fridays at 6p PST Reach out to: Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Michael Shutt on IG https://www.instagram.com/whmike/?hl=en (@whmike) Michael on A Lesson is Swimming on IG https://www.instagram.com/alessoninswimming/ (@alessoninswimming) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and our new tools/resources page Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  The Headache Nutritionist: https://www.headachenutritionist.com/ (https://www.headachenutritionist.com/)  Support us at:  https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD! We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher) https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), https://my.captivate.fm/twitter.com/makingheadwaypo (Twitter), orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

What should you look for in a good rehab therapist? How do you find a good neuro recovery clinic? This episode is a must listen for therapists and patients! Today, Marabeth and Danielle from https://www.expanded-practice.com/ (Expanded Practice) explain their ideals surrounding good therapy.  Positive mindset in both the patient and the therapist forms the basis of successful therapeutic relationships.  Without hope, you have nothing; it is a medical necessity.  Their practice proposes that emotions are contagious; therapists have to control their stress to avoid transferring it to their patients.  Join us to feel inspired and gain knowledge on how to get the most out of your recovery! Links to any resources mentioned:  Stroke Risk Article: https://www.today.com/health/mind-body/stroke-may-triggered-anger-exercise-hour-rcna8251 (Stroke may be triggered by anger, upset, or intense exercise in the hour before.)   https://www.expanded-practice.com/therapists (Classes for therapists): 12 month program in 4 month segments https://www.expanded-practice.com/ (8 Simple Ways to Become a Better Therapist Today) Reach out to: Expanded Practice: https://www.expanded-practice.com/ (https://www.expanded-practice.com/)  IG: https://www.instagram.com/expandedpractice/ (Expanded Practice) Facebook: https://www.facebook.com/expandedpractice (Expanded Practice) Eryn on IG https://www.instagram.com/eryn_makingheadwaypodcast/ (@eryn_makingheadwaypodcast) MHP on IG https://www.instagram.com/makingheadwaypodcast/ (@makingheadwaypodcast ) Go to our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for full show notes and resources Stroke Recovery with Motus Nova: https://motusnova.com/makingheadway/ (https://motusnova.com/makingheadway/)  Support us at:  https://www.patreon.com/MakingHeadwayPodcast (Patreon) Donate section on https://www.makingheadwaypodcast.com/donate (our website).  10% of profits go to our favorite non-profit of the moment HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts) https://open.spotify.com/show/4Ishnxgh8xbJfV8BtbCtZw (Click here to subscribe via Spotify) https://making-headway.captivate.fm/listen (Click here to subscribe via RSS) https://www.stitcher.com/podcast/making-headway (You can also subscribe via Stitcher) https://www.makingheadwaypodcast.com/ (Visit the Making Headway Podcast website) to learn more about Eryn and Mariah and our journey to podcasting. Follow us onhttps://www.instagram.com/makingheadwaypodcast/ ( Instagram), Twitter, orhttps://www.facebook.com/makingheadwaypodcast ( Facebook). As an Amazon Associate, Making Headway may earn from qualifying purchases via links provided.

This. Episode.  It has hit more glitches than any other one!  Sound quality and late posting aside, this is one of our best! It's a metaphor for how life is.  Rewarding experiences oftentimes require the most work.  It is these hard times that end up giving us the most value; as brain injury survivors we understand this all too well!   Sara Tucker Howe is an inspiration.  She has used her journey to sculpt her into a compassionate and loving human.  Our conversation is a powerful reminder that true beauty is a reflection of our inner spiritual and mental health.  This episode has elements to feed your soul!  Learn more about Sara and connect with her as one of life's sherpas at https://www.saratuckerhowe.com/ (saratuckerhowe.com)! Get a free workout with Sara on our NEW https://www.makingheadwaypodcast.com/tools-and-resources (tools and resources page)!  In this episode: Sara's Website and coaching business is LIVE!! https://www.saratuckerhowe.com/ (Saratuckerhowe.com) Health coaching, personal training, virtual training Clients come to Sara for mindset, learning how to care for your whole self, and personal training.   Mindset, mindfulness, and movement builds you as a healthy person on the inside which is then reflected on the outside. Go to the https://www.makingheadwaypodcast.com/tools-and-resources (new tools and resources page) on our website http://www.makingheadwaypodcast.com (www.makingheadwaypodcast.com) for a FREE lower body workout from Sara! Gender norming The roles that are expected of us Living in your emotions and learning to self soothe Filling your own cup How Full is Your Bucket by Tom Rath: super powerful kids book we all can learn from; link below We can't fix others.  We can fix ourselves and then live by example On Site Workshops; Cumberland Furnace, TN, link below Living Centered Program An off the grid, inner-work retreat  Group meditation, lectures, group experiential therapy Insights Everybody has trauma and your body remembers it, from small things that happened with your peers to large life events Psychodrama- a role play experience that allows you to play your inner child and members of your family. Allows you to experience situations from multiple viewpoints Very safe environment Every human wants to be seen and heard for who they are Validating experience Human beings not human doings Trust the process It may suck but you will get there and get through it Recharging to find your peace The spider web A parallel to life While making the web, the spider falls and gets back up making beautiful imperfections within the web.  These lines strengthen the structure. The web is like life.  Our story is written a little bit (the big lines of the web).  You're born into what you're born into Throughout life you fall and get back up. It's not perfect.  You get back up and keep going.  These make all the beautiful intricacies of life (like the intricacies within the web) A reminder that we make beauty out of our life events Sara's personal training Half marathon, a challenge out of the comfort zone Continual challenges to the body yield results Stroke risk article: high intensity workouts and high stress as risk factors for stroke, get link below Adding stressful exercises to high stress lives–maybe the better challenge for you at those times is doing something soothing, walking or yoga Listening to our bodies Looking healthy isn't the same as being healthy on the inside Mindset, mindfulness, movements Consider your morning routine and how it makes you feel Consider helpful day starters beyond your cell phone: meditation, yoga flow, inspirational reading Find Your Happy Daily Mantras by Shannon Kaiser, link below The compliments on your body don't equal health.   Are you going to suffer internally to have a “good” body?  Where do you get your...

A first ever solo episode! Join Eryn as she delves into all the skills that have helped her post brain injury.  Listen to learn more about pacing, the value of a broad support team, monopolizing on your new ‘slower' brain, and for some awesome pod, book, and movie recommendations. You won't want to miss this one.  It's all that and a bag of tricks! (Just a little biased:) In this episode:  **note: this was recorded before our season opener, we WILL be releasing episodes every week starting Jan. 3, 2022 Value of rest Value of the community.  We got you! I know they had me and still do. Lessons learned in recovery: Reaching out and helping others Not here to preach to others on what to do or not to do Value of life coaching See links below for Joanne Susi Brain Injury Association of Massachusetts (BIA-MA)–has great support group resources The pitfalls of doing what you “should“ do or some rule you need to follow …this is your ego talking.  Your mind's voice.  The ego is based on what you have done in the past and values keeping you safe.  Left unchecked, it can keep you stuck The other voice is your spiritual self i.e. god, intuition, universe, etc..it can help you try something new The art of slowness Sitting and reflecting Brain injury may make you feel slow, the art of getting through brain injury is figuring out how to monopolize on this Rest Prioritization Suggestion: write dpwn each thing you need to do and then put it away. Take a rest. Come back to it.  Narrow down which things need to stay on the to-do list based on the due date.   What date is it actually due? Do you really need to get this done ahead of time?  Do things for when they are actually due.   Work on a piece of each thing gradually.   You don't have to over-achieve or have things done early.  Time out how long common tasks take you.  This will help you plan so that you can avoid overbooking yourself Time blocking Try to avoid rigidity.  Leave some flexibility in your schedule In order to time block you have to know how long each thing actually takes you (on average) Once you know how long things take, were you scheduling realistically or trying to cram too much in? Do you have realistic expectations? Reflect on how you use your time The dangers of unsolicited advice and trying to force moments with other people.  What you want might not be realistic “Brain injury strength”: the opportunities found in hardship; where you see the beauty Movie: Collateral Beauty- seeing the beauty in the hard times Beauty still occurs while awfulness is happening. The world is filled with oxymorons It's ok to be human; to be imperfect.  Dichotomies exist.  We have to be flexible. It's not black and white.  Good exists with the bad. Look for the collateral beauty.  Brain injury journey I lay out what I've been through.  I'm vulnerable. I'm a caterpillar that can see butterflies and wants to be one.  I'm slowly becoming one. Synopsis of my stroke experience (related to perimesencephalic subarachnoid hemorrhage)  The lows of depression lasted 10 months Mental Health Therapy and life coaching have been a must! Support system: family and friends Best hubby award goes to…Troy! Low self-esteem with depression Hyperactivity, headaches, tingling, no-energy, fatigued, and impulse control issues rear their ugly heads Unsupportive healthcare providers  Functional neurology (turned out to be a dead end, OT ended up being the most helpful) Asking supports to give me a check if I am acting out of line Resources Coaching for Leaders with Dave Stahowviack (podcast): Listen on Apple Podcasts: https://podcasts.apple.com/us/podcast/coaching-for-leaders/id458827716 (https://podcasts.apple.com/us/podcast/coaching-for-leaders/id458827716) We Can Do Hard Things (podcast): Listen on Apple Podcasts:...

We're BAAAAAACCCKKK! And better than ever!  Check out Season 2, episode 40 to find out what Mariah and Eryn have been up to and where the show is headed in 2022.  Also, tune in for some great, hard-earned advice on how to help yourself and others dealing with brain injury along with what to look for in a healthcare provider.  These lessons have come hard won by yours truly, Eryn! Join us in celebrating the start of Season Two!! Happy 2022 to you all!!  In this episode: Where We've Been Burnout The need for seasons, pacing, and rest Health Updates The dangers of all or nothing thinking Leads to a crash Long term recovery; when the symptoms don't consume you daily Identifying as brain injured, what does it mean long term? Brain injury as a fanny pack, it comes and goes but can be taken with you if chosen Living in brain injury vs. letting it own you vs. moving away from it You can move past it and some of us are lucky enough to not have to live in it daily Mariah's gallbladder surgery: a reminder of needing self-care Priorities shift over time, then you readjust, and they shift again The power of saying “No” Bye Mariah!! Tata for now.  Thank You!!!!!!! When do you let go of brain injury? Can you?  Maybe it is when you don't need or have to think about it every day? Brain injury as a spectrum Not sitting in the trauma or reliving it This is not a ‘peace out' for Mariah Krempels Center: a support program for brain injury survivors and caregivers.  It is local in NH but also online Mariah is working with this agency  Allows her to apply lessons learned in brain injury a different way Having a brain injury gives her an advantage New life after brain injury can be a very devisive term.  So many are trying so hard to obtain their old life Where MHP is going in the future Season Two starts now! Series on relationships and brain injury Shows on trauma, meditation IG relationships and interactions help to form the speakers and topics for the upcoming season along with being a personal support for Eryn in her recovery Eryn's updates 2021 was 1 mile forward and 2 miles back Blood in brain in now reabsorbed and old, damaged circuits are trying to come back on board.  It's like using a cell phone with a cracked screen.  It might still work but it doesn't work well Yes! Final confirmation that Eryn DID have a STROKE. Medical and personal acknowledgement of this has allowed for better resources Depression from November 2021 to August 2021 It gets dark When joy returned Eryn's brain wasn't used to the high energy Movie recommendation: Inside Out Autonomic Nervous System Dysfunction Emotional Dysregulation How to help someone or yourself while they're going through it: Food Provide a safe space to share, be heard and respected Acknowledgement allow for awareness.  Awareness allows you to have a choice of how you want to respond You have a unique skill set; listen to it and use it Have a broad support system filled with many different people with many different skills Make sure the person suffering knows you are there for them Not everyone can be there or has the right skills to be present in that moment.  This is OK!  It is preferred that you know your lane and stay in it. Find people with the right skills Learn how to listen to yourself Awareness allows you to make a choice Know yourself.  Know your intuition. Learn to know what you need. Practice it. Healthcare providers (HCP) may not be supportive Look for HCPs who know how to say, “I don't know; let me help you find someone who does.” HCPs may not listen or recommend.   They likely don't understand you.   They may recommend treatments that are WRONG for YOU.  (They don't know you like you know YOU!) Self advocacy is needed with HCPs but is really hard! Many providers need their egos managed.  Some doctors do not like to be...

Have you had trouble describing what you are experiencing post brain injury? Is it hard for you to connect what makes symptoms better or worse? Felicia and Allie know first hand how hard it is to gain self-awareness, understand your new self, communicate your experience with others, and get the help you need. Their own personal journeys with brain injuries caused by concussions led them to start the Keep Your Head Up Foundation. The foundation aims to give others the tools and education needed to empower survivors and their support systems post injury. We love how these two used their injuries to support each other and have shared their learning to help others! We know you will too! In this episode: Felicia tells her story: suffered a concussion playing ringette in grade 10 Allie tells her story: suffered a concussion playing rugby in grade 12, 6 weeks before graduation Severity of symptoms at the time of the injury and/or loss of consciousness do not correlate with if you'll get Post Concussion Syndrome/Symptoms They formed a friendship and supported each other through their recoveries Being able to connect with others going through similar injuries has been really helpful.  Recovery can be lonely and people that haven't experienced it do not understand what you are going through https://www.keepyourheadup.ca/ (Keep Your Head Up Foundation )was born to connect people, make a community, and provide tools to help you connect with resources and cope with your brain injury. The goal is to teach and provide others what they need to get support and gain self-awareness The mission is to educate those with brain injury along with the community The website has https://www.keepyourheadup.ca/toolkit (tools) to help those with brain injuries track symptoms and how they affect your life.  The tools help you become more aware of what is draining and what is restorative along with how this changes over time.  Energy journal Sleep journal Symptom tracker  Wellness plan Circle of Support Goal Setting You are in charge of how you carry your injury with you Community outreach through Keep Your Head Up Foundation--follow them on https://www.instagram.com/keepyourheadupfdn/?hl=en (Instagram) to stay involved.   The foundation also has education programs geared towards students, athletes, teachers, coaches, and parents that aims to empower individuals to be more prepared to face the challenges they may encounter after a concussion. https://www.keepyourheadup.ca/what-we-offer (Learn more here). Wisdom Wednesday: if you are interested in sharing your story and what you have learned reach out https://www.keepyourheadup.ca/wisdomwednesday (here) Wisdom learned through the foundation: there is power in sharing your story; not only for your own healing but also to help someone else.  You never know when what you have to say will resonate with someone who really needs to hear it.   Links to any resources mentioned:  Instagram: https://www.instagram.com/keepyourheadupfdn/?hl=en (@keepyourheadupfdn) Website: https://www.keepyourheadup.ca/ (https://www.keepyourheadup.ca/) Toolkit: https://www.keepyourheadup.ca/toolkit (https://www.keepyourheadup.ca/toolkit) Community outreach: https://www.keepyourheadup.ca/what-we-offer (https://www.keepyourheadup.ca/what-we-offer) Interested in sharing your story on https://www.keepyourheadup.ca/wisdomwednesday (Wisdom Wednesday)? Click https://www.keepyourheadup.ca/wisdomwednesday (here)! HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to subscribe to the Making Headway Podcast: https://podcasts.apple.com/us/podcast/making-headway/id1534964037 (Click here to subscribe via Apple Podcasts)...

In a world where being fast and pushing through exhaustion is everything, the slow down after a brain injury is especially jarring. Hannah Halvorsen, professional ski racer on the US Cross Country Ski Team, joins us to share what brain injury has taught her. Take a listen to our talk on how awareness, acceptance, appreciation, kindness, support, and gratitude have all culminated to make this athlete a true star!    In this episode: Hannah's Story Hit by a car when crossing the street in November 2019 Suffered a subdural hematoma and knee injury Her knee, the visible injury, slowed her down from jumping right back into skiing.  This was a blessing in disguise as it slowed her down from pushing too hard with her brain injury.  Some of her brain injury symptoms were much more vague and would leave her wondering if it was just her being lazy or over sensitive Some lessons: As soon as you start to feel tired, just stop As a high level athlete you are trained to push through fatigue, pain, and exhaustion--that's what gives you an edge.  With a brain injury you have to adjust and learn to listen to yourself  Returning to skiing Her coach understood that she needed to take it slow and helped her train at a safe pace  The knee's rehab was cut and dry with tangible protocols to follow.  Brain recovery requires so much more awareness since others can't see what is happening.  We aren't trained to have awareness of our brain function so when changes occur it is easy for us to judge ourselves as being personal failures When she could admit that there was depression and accept it as a result of her brain injury it helped lessen her personal burden “Everything is going great,” but she didn't feel great.  That can lead to feeling ungrateful because everyone perceives you as being an inspiration but you don't feel that way.  Everyone's support is amazing but it doesn't take away the depression and can feel extra heavy.  Being a professional athlete means there are many resources for recovery.  Like most things in life you have to go get it. Through the recovery process, Hannah has learned to assess what the resources are and how to ask for them.  Asking for and accepting help can be really hard to do but is a crucial skill especially in recovery  Gratitude  For having health insurance and access to care For having strong support systems For all the people that have helped For inter-reliance and the loving support of others.   Lessons from recovery Becoming more aware of how you treat yourself allows you to better treat others.   Getting help when you are struggling helps to fill you back up. You are not alone, there is help It takes a team to recover.  Gratitude for physical abilities that were easy to take for granted prior to the injury An ability to appreciate things even if they aren't perfect Appreciate what you can do today.  Celebrate what you did rather than focusing on what you couldn't do.   A new appreciation for health without picking on every little thing about your body. It was a time to reset thinking.   It's not about denying yourself your goals.  It's about accepting where you are and working towards what you want.  Advice when you are in the thick of recovery: figure out what you can be grateful for and what you can do today.  If you can accomplish both of those things, that's enough! Follow Hannah:  Instagram: https://www.instagram.com/hannah.g.halvorsen/?hl=en (@hannah.g.halvorsen) https://www.hannahhalvorsen.com/ (https://www.hannahhalvorsen.com/) HELP US SPREAD THE WORD!  We are a podcast for brain injury survivors by brain injury survivors. If you dug this episode head on over to Apple Podcasts and kindlyhttps://podcasts.apple.com/us/podcast/making-headway/id1534964037 ( leave us a rating, a review and subscribe!) Ways to...

We survivors understand the world in a different way. We have found that the worst of times shape you in a fundamental way like nothing else can. The silver linings are plentiful.  Building a life after injury that holds these new perspectives in the forefront takes courage and an openness to become something new. Elle Gargano has taken her experiences after surviving a mass shooting to shape her life into the one she wants it to be.  Recovering from a brain injury doesn't mean you get over it. It means you learn how to find joy every day, accepting and incorporating all parts of yourself. You have the power to be you and make an impact in this world. Live Brave! @brave_the_label In this episode: Elle survived a gunshot to the head suffered on October 1, 2017 at a country music festival mass shooting in Las Vegas As horrific as the shooting was, Elle found silver linings; “blessings hidden in the moments” (6:54).  Goodness is there even in the worst times At a time when people were faced with saving themselves, complete strangers helped her, her friend, and others get out  During your time on earth, the most important thing about it is the connections you make with others.  Things don't matter; it's the people in your life that give it value and meaning.  Near-death experiences give a valuable and life-changing perspective that others may not understand.   A testament to the power of good: complete strangers helped Elle and her friend make it out of the venue and took Elle to the hospital Making connections with other survivors of the event is really hard.  Everyone is in a different place with processing it. It can be very overwhelming to revisit the trauma.   Elle needed a craniectomy to remove the bullet fragments and a piece of her skull.  A few weeks later she needed a cranioplasty (synthetic skull insertion).  She had side effects of hydrocephalus which is a build up of fluid in her brain that eventually required a third surgery to insert a shunt. Loss of self and lack of identity after brain injury-- That feeling of not identifying with your past self and interests.  Not knowing yourself anymore--your interests and abilities are different post-injury.  You have to relearn who you are after injury.   Changing from your previous over-achieving self to someone with a different level of performance is not only hard on you but it changes the roles you play within your social contexts. Family, friends, and yourself all have to adjust to the new you and figure out the new role you play. It is hard on everyone. Joe Borges ep. 30: Before our injuries we were caterpillars in the dirt but after injury we are butterflies soaring.  Yet everyone expects us to still be caterpillars.   The adjustment to being home Her initial mentality post-injury was filled with gratitude for being alive but as time has gone on she has learned many things about herself and dealing with trauma.   Elle's career path changed post-injury from a conventional corporate path to one where she could be more mindful of her needs with a controlled pace and a focus on helping others.   Elle started a business: Brave the Label Brave the Label Elle's company:  When she was thinking of names she considered what she wants people to embody while wearing her clothes: Bravery, a feeling of empowerment, confidence, you can do anything you put your mind to, you have it in you!! The business is helping others while helping Elle regain her sense of purpose, accomplishment, and meaning.   It's a clothing company of hand tie-dyed sets of athleisure wear  10% of all proceeds go to mental health initiatives!! Brave the Label is a community, you are a part of something bigger when you are wearing her clothes Having structure and things you can do to contribute to your household helps with recovery as it gives you...

Domestic violence survivors are a unique subset of brain injury.  Many have experienced several types of brain injury from blunt force trauma and strangulation inflicted on them by their abusers.  They commonly experience several types of trauma and mental health struggles.  Substance use and limited social support can also play a role.  Getting survivors the services they need to address all the challenges they face requires a unique set of interventions.  The Ohio State University's health equity intervention scientist, Julianna Nehmeth, is working on just this.  Her research focuses on developing, providing, and evaluating sets of interventions that are used by lay people to guide conversations with survivors, identify their needs, and connect them with services to best meet the survivor where she is at.  You won't want to miss hearing about this transformative work! In this episode: Julianna's research focuses on how DV survivors with brain injuries can get better access to services One in three women are affected by domestic violence (DV): some groups have even higher incidences.  It is a widespread public health issue Julianna started doing community based action research to better understand the needs of the survivors and centers that help them.  Her research focuses on modifying interventions to better meet all their needs.   Many DV survivors develop BI because blunt force head trauma and strangulation are common types of abuse.   Ohio Domestic Violence Network received a federal grant focused on developing interventions for domestic violence service organizations to better meet the mental health needs of DV survivors with brain injury Julianna did a needs assessment.  What she found was that the advocates who help DV survivors were unaware of brain injury as being an issue They also interviewed survivors and found  that over 8 in 10 had been hit in the head or had their head hit into something.  Over half of the survivors had this happen so many times that they couldn't report a number Over 8 in 10 survivors also reported strangulation Many survivors do not realize they have brain injuries In the DV population, many survivors experience TBI from blunt force trauma combined with an anoxic or hypoxic brain injury from strangulation. This is a unique population as many brain injury studies do not focus on brain injury due to multiple causes These survivors suffer from trauma, ongoing stress, mental health struggles, racial trauma, and sociocultural trauma. The DV brain injury population is highly complex and suffers from a type of brain injury that hasn't been studied at all. Her team reached out to The Ohio State University's CBI mouse research program to shine a light on this gap  Current interventions to help this population were not effective to support the DV BI population.  Julianna's work focuses on bridging this gap.  There are also many unmet mental health needs in this population Check out the work of https://csw.osu.edu/about/faculty-staff/faculty-directory/mengo-cecilia-phd/ (Cecilia Mengo) to learn more Julianna's work made interventions for advocates in community based organizations to better meet the needs of the DV BI population They made Care Tools to help advocates directly communicate with survivors about brain injury and mental health Their tools are free on the https://www.odvn.org/brain-injury/ (Ohio Domestic Violence Network website) Interventions need to focus on all the pieces of the puzzle to meet survivors needs: mental health, trauma, brain injury, substance abuse They found that you have to focus on the big picture and ask survivors what symptoms are getting in the way of their lives today.  What is it they need relief from and lets try to advocate for the right type of help  Some may need medical help while others need more of a mental health focus They found in