Podcasts about Stroke recovery

Welcome to the Speaking Podcast. Guest Maria Garcia shares her powerful story of resilience after a massive stroke at 25 and the long recovery that followed. Maria discusses relearning basic functions, writing her memoir Breaking Into Delight, and discovering a transformative nutritional approach years later that significantly improved her recovery. She now coaches others to reset their relationship with food and reclaim their health and purpose.   --- All Episodes can be found at ⁠⁠https://www.podpage.com/speaking-podcast/⁠   All about Roy / Brain Gym & Virtual Assistants at ⁠⁠https://roycoughlan.com/⁠⁠   #mariagarcia #speaker #wildfit    Bio of Maria Garcia Maria Garcia is a powerful example of resilience and self-discovery. After earning double majors in Finance and International Business, she initially made her mark in the corporate world. But her path took an unexpected turn when a massive stroke altered her life forever. Through sheer determination and a long, challenging recovery, Maria emerged stronger, with a deeper sense of purpose.Maria channeled her transformative journey into her memoir, Breaking Into the Light: A Journey of Self-Discovery and Transformation, sharing her journey and the lessons learned along the way. Almost a decade after the book's release, she discovered a groundbreaking nutritional methodology, which played a pivotal role in her continued recovery and personal transformation.Today, Maria is a passionate coach, committed to helping others navigate their own journeys of recovery and transformation. She specializes in guiding individuals to reset their relationship with food, unlocking profound shifts in their overall life experience. What we Discussed:   00:00 Intro   00:20 Who is Maria garcia   02:10 How she got ill   03:30 Organ donation company speaking to her family   04:40 What was going on in her head when she could not move for 2 weeks   05:30 Her 1st movement in her body   07:00 Getting scared when sh saw the Nurse walk in   07:50 Dr's do not always get it right   09:25 The Next stage after the hospital   10:30 Birth Control pills can be dangerous   12:30 When she went home in a wheelchair and diapers   14:15 What was going on in her head at this stage   15:20 How she got out of the wheel chair   16:10 How Yoga helped a lot   17:30 Investigating different ways to heal   18:53 How her family kept Hope Alive   20:05 Getting into Personal Development   23:52 The importance of rereading a good book   26:00 When she found an ad about Nutrition   28:25 Developing a career on Nutrition   30:13 How the Food has been made toxic   30:30 The Wheel of Health   32:30 People lost touch with Nature   33:23 How to find healthy food   35:00 The Food Pyramid was inverted   35:40 Listen to your body   36:50 Pringles are not healthy or safe   38:30 Pork and Chicken are not the best meat to eat   39:45 What has she seen of illnesses being cured   41:30 How I cured my back pain   43:30 How they create confusion with food   46:10 Her Book on the journey   48:00 How she got onto the speaking stage   49:40 Tapping into her intuition   55:00 Sometime the vitamin pills are not natural   How to Contact ⁠www.genuinelymaria.com⁠ ⁠https://www.linkedin.com/in/maria-garcia-7273a8230/⁠ ⁠https://www.facebook.com/profile.php?id=61565412543083 ⁠ ⁠https://www.instagram.com/genuinelymaria.wf/ ⁠ ------------------ All about Roy / Brain Gym & Virtual Assistants at ⁠⁠https://roycoughlan.com/⁠⁠  

Welcome to the Speaking Podcast. Guest Maria Garcia shares her powerful story of resilience after a massive stroke at 25 and the long recovery that followed.Maria discusses relearning basic functions, writing her memoir Breaking Into Delight, and discovering a transformative nutritional approach years later that significantly improved her recovery. She now coaches others to reset their relationship with food and reclaim their health and purpose.---All Episodes can be found at ⁠https://www.podpage.com/speaking-podcast/ All about Roy / Brain Gym & Virtual Assistants at ⁠https://roycoughlan.com/⁠ #mariagarcia #speaker #wildfit  Bio of Maria GarciaMaria Garcia is a powerful example of resilience and self-discovery. After earning double majors in Finance and International Business, she initially made her mark in the corporate world. But her path took an unexpected turn when a massive stroke altered her life forever. Through sheer determination and a long, challenging recovery, Maria emerged stronger, with a deeper sense of purpose.Maria channeled her transformative journey into her memoir, Breaking Into the Light: A Journey of Self-Discovery and Transformation, sharing her journey and the lessons learned along the way. Almost a decade after the book's release, she discovered a groundbreaking nutritional methodology, which played a pivotal role in her continued recovery and personal transformation.Today, Maria is a passionate coach, committed to helping others navigate their own journeys of recovery and transformation. She specializes in guiding individuals to reset their relationship with food, unlocking profound shifts in their overall life experience. What we Discussed: 00:00 Intro 00:20 Who is Maria garcia 02:10 How she got ill03:30 Organ donation company speaking to her family04:40 What was going on in her head when she could not move for 2 weeks05:30 Her 1st movement in her body07:00 Getting scared when sh saw the Nurse walk in07:50 Dr's do not always get it right09:25 The Next stage after the hospital10:30 Birth Control pills can be dangerous12:30 When she went home in a wheelchair and diapers14:15 What was going on in her head at this stage15:20 How she got out of the wheel chair16:10 How Yoga helped a lot17:30 Investigating different ways to heal18:53 How her family kept Hope Alive20:05 Getting into Personal Development23:52 The importance of rereading a good book26:00 When she found an ad about Nutrition28:25 Developing a career on Nutrition30:13 How the Food has been made toxic30:30 The Wheel of Health32:30 People lost touch with Nature33:23 How to find healthy food35:00 The Food Pyramid was inverted35:40 Listen to your body36:50 Pringles are not healthy or safe38:30 Pork and Chicken are not the best meat to eat39:45 What has she seen of illnesses being cured41:30 How I cured my back pain43:30 How they create confusion with food46:10 Her Book on the journey48:00 How she got onto the speaking stage49:40 Tapping into her intuition55:00 Sometime the vitamin pills are not natural How to Contact www.genuinelymaria.comhttps://www.linkedin.com/in/maria-garcia-7273a8230/https://www.facebook.com/profile.php?id=61565412543083 https://www.instagram.com/genuinelymaria.wf/ ------------------All about Roy / Brain Gym & Virtual Assistants at ⁠https://roycoughlan.com/⁠ 

Welcome to the Speaking Podcast. Guest Maria Garcia shares her powerful story of resilience after a massive stroke at 25 and the long recovery that followed. Maria discusses relearning basic functions, writing her memoir Breaking Into Delight, and discovering a transformative nutritional approach years later that significantly improved her recovery. She now coaches others to reset their relationship with food and reclaim their health and purpose.   --- All Episodes can be found at ⁠⁠https://www.podpage.com/speaking-podcast/⁠   All about Roy / Brain Gym & Virtual Assistants at ⁠⁠https://roycoughlan.com/⁠⁠   #mariagarcia #speaker #wildfit    Bio of Maria Garcia Maria Garcia is a powerful example of resilience and self-discovery. After earning double majors in Finance and International Business, she initially made her mark in the corporate world. But her path took an unexpected turn when a massive stroke altered her life forever. Through sheer determination and a long, challenging recovery, Maria emerged stronger, with a deeper sense of purpose.Maria channeled her transformative journey into her memoir, Breaking Into the Light: A Journey of Self-Discovery and Transformation, sharing her journey and the lessons learned along the way. Almost a decade after the book's release, she discovered a groundbreaking nutritional methodology, which played a pivotal role in her continued recovery and personal transformation.Today, Maria is a passionate coach, committed to helping others navigate their own journeys of recovery and transformation. She specializes in guiding individuals to reset their relationship with food, unlocking profound shifts in their overall life experience. What we Discussed:   00:00 Intro   00:20 Who is Maria garcia   02:10 How she got ill   03:30 Organ donation company speaking to her family   04:40 What was going on in her head when she could not move for 2 weeks   05:30 Her 1st movement in her body   07:00 Getting scared when sh saw the Nurse walk in   07:50 Dr's do not always get it right   09:25 The Next stage after the hospital   10:30 Birth Control pills can be dangerous   12:30 When she went home in a wheelchair and diapers   14:15 What was going on in her head at this stage   15:20 How she got out of the wheel chair   16:10 How Yoga helped a lot   17:30 Investigating different ways to heal   18:53 How her family kept Hope Alive   20:05 Getting into Personal Development   23:52 The importance of rereading a good book   26:00 When she found an ad about Nutrition   28:25 Developing a career on Nutrition   30:13 How the Food has been made toxic   30:30 The Wheel of Health   32:30 People lost touch with Nature   33:23 How to find healthy food   35:00 The Food Pyramid was inverted   35:40 Listen to your body   36:50 Pringles are not healthy or safe   38:30 Pork and Chicken are not the best meat to eat   39:45 What has she seen of illnesses being cured   41:30 How I cured my back pain   43:30 How they create confusion with food   46:10 Her Book on the journey   48:00 How she got onto the speaking stage   49:40 Tapping into her intuition   55:00 Sometime the vitamin pills are not natural   How to Contact ⁠www.genuinelymaria.com⁠ ⁠https://www.linkedin.com/in/maria-garcia-7273a8230/⁠ ⁠https://www.facebook.com/profile.php?id=61565412543083 ⁠ ⁠https://www.instagram.com/genuinelymaria.wf/ ⁠ ------------------ All about Roy / Brain Gym & Virtual Assistants at ⁠⁠https://roycoughlan.com/⁠⁠  

Stem Cell Stroke Recovery: What the Research Says (and What It Doesn't) If you've had a stroke (or you love someone who has), you've probably seen the same promise pop up again and again: “Stem cells can fix the damage.” And when you're tired, frustrated, and doing the hard work of rehab every day, that promise can feel like a lifeline. But here's the problem: hope is powerful… and hype knows it. A viewer recently asked me a question that's become more common over the last few years: “What can you say about the effectiveness of STC30 stem cell treatment?” And my honest first reaction was: I don't even know what that is. So instead of guessing, I did what I always encourage stroke survivors to do: I checked. Carefully. Because the last thing I want is to sound confident while accidentally sending someone into an expensive rabbit hole. What most people think stem cells do (and why that's not quite right) When people hear “stem cells,” it's easy to imagine a simple story: “New cells will replace the damaged brain cells… and I'll be back to normal.” But most current thinking in research is closer to this: Stem cells may act more like helpers than replacements. Instead of becoming brand-new brain tissue, the hope is that stem cells may release signals that support healing, things like: calming inflammation improving the “repair environment” in the brain supporting blood flow and recovery processes encouraging new connections (neuroplasticity) So rather than “magic new brain,” the real question becomes: Does this create better conditions for recovery? That's still an exciting idea. But exciting isn't the same as proven. The honest truth about stem cell stroke recovery research When you zoom out and look at the research as a whole, the most accurate summary is this: There are encouraging signals… and real uncertainty. Some studies suggest stem cell approaches might help some people improve things like movement, function, or daily activities especially under certain conditions. But here's the fine print most people never see: 1) Studies don't all use the same approach Trials vary widely in: the type of cells used how they're prepared when they're given (early vs later) how they're delivered (IV drip vs artery delivery vs other methods) what outcomes they measure how long participants are followed So when someone says, “stem cells work,” the real question is: Which stem cells are given when, given how, and for who? 2) Quality varies across trials Not all trials are designed equally. Some are small. Some use different measurement scales. Some follow up for shorter periods. And that makes it hard to draw strong conclusions that apply to everyone. 3) Long-term certainty still isn't there Even when short-term safety looks okay in some studies, long-term tracking can be limited depending on the approach used. So the responsible stance is not “yes” or “no.” It's: “Show me the details.” Why branded programs confuse people (and what to do about it) This is where many survivors get stuck. A clinic or company may use a name that sounds scientific, something like “STC30,” “protocol X,” “advanced regenerative therapy,” but the name itself doesn't automatically tell you: what the cells actually are whether it's been tested publicly whether results are published whether it's regulated as treatment, trial, or something else So if the name is unclear, don't decide based on the label. Decide based on the details. “Promising doesn't automatically mean proven.” My simple 3-question filter for any stem cell offer You don't need a science background to avoid being misled. Here's the filter I use simple, practical, and hard to game: 1) Is this proven… or experimental? If a provider can't clearly explain in plain English what the treatment actually is, where it comes from, and what the protocol involves, treat it as experimental. Experimental doesn't automatically mean bad. It just means: you're stepping into uncertainty, and you deserve to know that upfront. 2) What evidence is public and checkable? Look for things like: published studies you can read registered clinical trials clear reporting on outcomes and side effects follow-up data over time If all you're getting is testimonials and before/after stories, that might feel hopeful… but it's not enough to make a serious decision. 3) What's the real cost (money and focus)? This one is huge in stroke recovery. Sometimes people chase a big intervention and accidentally reduce the things that are already proven to help: consistent rehab practice repetition and movement training sleep and recovery emotional support and community nutrition and general health basics So if you ever explore stem cells, my personal view is: Don't let it replace the fundamentals. Treat it as an add-on decision, not the main plan. Questions to ask any provider before you spend a cent If you're seriously considering stem cell therapy, print this list or screenshot it. Ask your provider: What exactly are the cells? Where do they come from? How are they prepared and tested for quality? How is it delivered: IV drip, injection, artery, or other? Who is it best suited for, and who should NOT do it? What are the known risks and side effects? What follow-up do you provide, and for how long? Is this part of a registered clinical trial or private treatment? Can I see the trial registration or published data? If they can answer calmly and clearly, that's a good sign. If they dodge, rush, or oversell? Pause. The research shortcut that changed how fast I can respond I used to spend half a day digging through articles, trial registrations, and scattered resources, especially when someone asked a question about a product or protocol name I didn't recognize. Now I use Turnto.ai to speed up the finding part, and then I still do the most important step: I check what matters. That means: reading beyond headlines looking at study details comparing sources staying honest about what's known vs unknown If you're the kind of person who wants to stay current, tools like that can help you find relevant research faster but the real power is still the same skill: curiosity without getting fooled by hype. Where to go next if you feel stuck in recovery If you're reading this and thinking, “I just want something that works,” I get it. But the best progress usually comes from: a clear plan consistent practice the right supports and not wasting energy on shiny distractions If you want to go deeper, here are two ways I can support you: Book: recoveryafterstroke.com/book Patreon: patreon.com/recoveryafterstroke And if you haven't watched the video yet, it's embedded above because seeing how I search and how I evaluate claims can help you do the same. This blog is for informational purposes only and does not constitute medical advice. Please consult your doctor before making any changes to your health or recovery plan. The post Stem Cell Stroke Recovery: What the Research Says (and What It Doesn't) appeared first on Recovery After Stroke.

How is advanced genetic engineering, stem cell biology, and AI-driven analytics reshaping the future of brain repair? Dr. Ruslan Rust, an Assistant Professor of Research Physiology and Neuroscience at the Keck School of Medicine of USC, joins the podcast to share his insights… With over 15 years of translational neuroscience research, Dr. Rust is developing next-generation gene-edited, induced pluripotent stem cell (iPSC)-derived therapies designed to overcome the biggest barriers in cell therapy — crossing the blood-brain barrier, immune rejection, and long-term safety. Dive in now to find out: Why current stem cell therapies struggle in stroke and neurodegenerative disease. Where stem cells are harvested.  How gene-edited iPSC-derived cells are engineered to cross the blood-brain barrier. The role of AI and single-cell omics in optimizing brain repair strategies. With additional training in MBA, bio-entrepreneurship, and scientific leadership, Dr. Rust brings a uniquely pragmatic lens to what it actually takes to turn cutting-edge neuroscience into viable therapies. Listen now for a rare look at how stroke recovery and Alzheimer's treatment may move from experimental promise to real clinical impact. You can keep up with Ruslan on X or by visiting his USC academic website!

In this episode, Matt speaks with Haley and Scott Hills, a married couple and co-owners of Hills Cooper Performance. Hallie is a physiotherapist with a background in neuro rehab, and Scott is a personal trainer, nutrition coach, and strength and conditioning specialist with deep experience in stroke rehabilitation.Together, they offer a compassionate and practical conversation about life after stroke — and why recovery is possible.In this conversation, they explore:What a stroke actually is and what early hospital treatment involvesCommon myths and misconceptions around stroke recoveryThe critical role of neuro rehab and why it needs more visibilityHow strength training can play a part in physical and neurological recoveryThe emotional and mental impact a stroke has on individuals and familiesTips and strategies to support progress — physically, mentally, and emotionallyWhy a multidisciplinary, long-term approach matters in stroke rehabWhether you're a stroke survivor, a caregiver, or someone working in health and wellness, this episode offers hope, clarity, and real-world advice for navigating one of life's most difficult challenges.Want to connect with Scott and Haley. Details below Instagram @scotty.is.my.coach  @haleyrhills @hcperformace_ If you have a question for the podcast or are interested in working with Matt, you can reach out at: • Email: info@wellnesseducationdubai.com • Website: www.wellnesseducationdubai.com • Instagram: @wellness_education_dubai • Facebook: @mattmarneyfitness • LinkedIn: Matt Marney (Wellness Education Dubai)    

In this episode, we'll explore emerging strategies to enhance recovery after stroke. Stroke rehabilitation has long relied on physical, occupational, and speech therapy, but advances in neuroscience are opening new opportunities to directly modulate brain networks, promote plasticity, and hopefully help patients regain function. Dr. Sean Dukelow's work focuses on neurorehabilitation and the mechanisms of recovery after stroke. He's a professor and head of Physical Medicine and Rehabilitation in the Department of Clinical Neurosciences at the University of Calgary. Dr. Dukelow was interviewed by Dr. Cheran Elangovan, vascular neurologist at University of Tennessee Health Science Center. Series 7, Episode 3  Disclosures: Dr. Dukelow serves on the advisory board for Merz and Ipsen, provides consultation for AbbVie, receives speaker fees from Merz

Foot Drop Solutions After Stroke Without an AFO: Ken Kerns' “New Way to Walk” (Plus Aphasia Recovery After a 10-Day Coma) Ken Kerns didn't just wake up from a stroke. He woke up from a 10-day medically induced coma after an AVM brain hemorrhage, facing a reality that would shake anyone's identity: right-side paralysis, aphasia, and the exhausting work of rebuilding everyday life from scratch. And then, because stroke recovery loves a twist, one of the nurses kept calling him Frank. That moment might sound funny now, but in the early days of brain injury, it landed like a true identity crisis. Ken would later turn that experience into a book title: Anything But Frank—and into a bigger message that matters for every survivor and caregiver: recovery isn't one problem to solve. It's dozens. And you solve them one by one. This episode covers the full story (AVM, coma, aphasia, purpose). But it also includes something many survivors are actively searching for: foot drop solutions after stroke without an AFO—specifically, a practical tool Ken found that helped reduce falls and made walking feel more natural again. The day everything changed: an AVM hemorrhage at home Ken's stroke happened early in the COVID era, when work had shifted home and hospitals were under intense strain. He was preparing for a meeting when he went to the bathroom and collapsed. His wife, Carrie, couldn't open the door—he'd fallen behind it. She called emergency services. Ken has no memory of those moments. Like many survivors, he had to rebuild the story from what others told him. What followed was terrifying uncertainty. A neurosurgeon reviewed imaging and initially feared a tumor (Ken had a history of kidney cancer years earlier). Carrie was allowed into the emergency room to say goodbye because it wasn't clear Ken would survive surgery. But in surgery, the cause became clear: an arteriovenous malformation (AVM). The surgeon removed it, and Ken was placed into a medically induced coma for 10 days. Aphasia: when your brain is fast… and your mouth won't cooperate When Ken woke, his deficits were immediate and brutal: Paralyzed on the right side Unable to speak Had to relearn swallowing Severe aphasia that improved over time One of the most honest parts of Ken's story is how confusing aphasia can feel from the inside. Ken described it like this: his cognition is there, answers are forming—yet the “path” to speech is obstructed. “My brain works much faster than my mouth.” “There used to be a direct path… and now that path is worn… covered by weeds.” That metaphor matters because it reframes aphasia as a communication access issue—not a lack of intelligence. Ken found a major turning point through a Minnesota-based communication group: Minnesota Connect Aphasia Now (MNCAN). Practicing weekly conversations (with support from a speech-language pathologist) rebuilt something more than words. It rebuilt confidence. He went from relying on Carrie to order food or check in at airports… to speaking up again in real-world settings. And eventually, he didn't just participate—he stepped into leadership and became president of the board. If you're living with aphasia, this is one of the most powerful “hidden wins” in recovery: you don't have to wait until speech is perfect to start practicing in the world. “Anything But Frank”: identity, emotion, and meaning after stroke In the hospital, a nurse repeatedly called Ken “Frank.” It sounds like a paperwork mistake—but for someone fresh out of coma, it triggered fear and confusion: Did I die? Am I someone else? Who will I FaceTime? When the iPad finally turned around and he saw Carrie, he cried—not from sadness, but relief. Later, Ken's siblings did what siblings do: they turned the story into a running joke. They called him Frank. Ken's response became a line that carried him forward: Call me anything but Frank. That phrase became the title of his book and a symbol of what recovery often is: reclaiming identity while your body and brain renegotiate who you are. Ken also spoke candidly about emotional recovery. In rehab, he felt intense anger—then shifted into a daily question that gave him structure: “Guide my day. Show me the purpose.” Whether you share Ken's faith or not, the takeaway is universal: When recovery feels chaotic, survivors need a meaningful frame to keep going. Foot drop solutions after stroke without an AFO: the “new way to walk” Ken found Foot drop is one of those stroke problems that seems “small” until it isn't. It can quietly steal independence through trips, falls, and fear—especially on stairs, uneven ground, and (in Ken's case) Minnesota snow and ice. Ken described classic foot drop challenges: Difficulty lifting the foot Frequent falls Trouble on the stairs Reduced confidence walking He used an ankle-foot orthotic (AFO), which helped. But later, he discovered a product that—for him—became a workable AFO alternative: Cadence shoes. Ken's experience was specific and practical: The shoe design helped his foot glide during the swing phase Then grip when the weight shifted forward He reported no falls since wearing them He said he no longer needed his AFO He felt stair descent improved because the shoe gripped rather than sliding off the step This is crucial: this isn't “one weird trick.” It's a tool that matched Ken's exact pattern of movement, environment, and needs. If you're exploring foot drop solutions, here's the smart way to use Ken's story: Treat tools as experiments, not guarantees Trial safely (with your physio/OT if possible) Test on the surfaces that actually challenge you (stairs, carpet edges, outdoor paths) Measure results: falls, near-falls, fatigue, confidence, walking speed Ken also used another independence tool: a left-foot accelerator to return to driving while his right ankle remained immobile. That's a reminder that “walking recovery” isn't only rehab—it's also smart adaptation. What to take from Ken's story (even if your stroke was different) Ken's recovery wasn't a straight line. It was many small wins, stacked over time. If you're in the thick of it, consider this simple plan: Name the real problem (not “I'm broken,” but “I trip when my foot drags.”) Practice communication in community (groups like MNCAN show what's possible) Choose tools that reduce risk today (falls steal momentum) Rehearse what matters (Ken practiced speeches until they were automatic) Protect your inputs (Ken avoids depressing “poison” media that drains recovery energy) And if you're a caregiver: the biggest gift is often helping your person keep experimenting—without pressure, without shame, and without rushing the timeline. Keep going with the full episode Ken's “new way to walk” is a valuable segment—but the whole episode is the real promise: AVM stroke recovery, aphasia progress, identity rebuilding, and the meaning that can emerge after trauma. If you want more stories like this (and practical tools survivors are actually using), you can also check out Bill's book and support the podcast here: Book: The Unexpected Way That A Stroke Became The Best Thing That Happened Patreon This blog is for informational purposes only and does not constitute medical advice. Please consult your doctor before making any changes to your health or recovery plan. Ken Kerns: 10-Day Coma, AVM Stroke Recovery, Aphasia Progress & Walking Confidence Ken woke from a 10-day coma after an AVM stroke, unable to speak or move his right side, then rebuilt his voice and his walking confidence for life. Book – Anything but Frank: A Journey of Healing, Patience, and Rediscovery Archway Publishing Amazon (U.S.) Amazon (Australia Additional Resources: Minnesota Connect Aphasia Now (MnCAN) Cadense Adaptive Shoes The Transcript Will Be Available Soon… The post Ken Kerns: 10-Day Coma, AVM Stroke Recovery, Aphasia Progress & Walking Confidence appeared first on Recovery After Stroke.

Introduction After a stroke, recovery doesn't end when rehab does. For many survivors, that's when confusion begins. Fatigue, brain fog, limited appointment time, and conflicting advice make it incredibly hard to know what actually helps. And while research is advancing rapidly, most survivors are left trying to piece together answers from podcasts, Facebook groups, and late-night Google searches. That's why this conversation with Jessica Dove London, founder of turnto.ai, matters. The Hidden Problem in Stroke Recovery: Information Overload Stroke survivors aren't lacking motivation. They're drowning in disconnected information — and often too exhausted to process it. Bill shares how, after stroke and brain surgery, even short bursts of research felt impossible. Jessica explains how parents and patients are expected to become full-time researchers — on top of surviving life-changing diagnoses. Why “Just Ask Your Doctor” Isn't Enough Doctors care deeply. But no clinician can keep up with thousands of new stroke-related publications every week. This gap leaves survivors feeling dismissed — not because professionals don't care, but because systems aren't built for rapid knowledge sharing. “You shouldn't have to rely on luck or Facebook groups to find something that could change your recovery.” How Tunrto.ai Changes the Stroke Recovery Equation turnto.ai doesn't replace doctors. It reduces the cognitive load on survivors. Jessica explains how the platform: Reads thousands of new stroke resources weekly Filters by your stage of recovery and priorities Surfaces research, patient experience, and expert insight together Updates automatically as your needs change For survivors managing fatigue, this alone is transformative. Real Examples: From Spasticity to Stem Cells Bill demonstrates how Tunrto.ai can instantly surface: Evidence and cautions around emerging treatments Patient experiences that add real-world context Research trends and unanswered questions Instead of hours of searching, survivors gain clarity — and better conversations with their care teams. Why This Restores Hope After Stroke Hope doesn't come from miracle cures. It comes from visibility — knowing what exists, what's emerging, and what's worth asking about. Tunrto.ai doesn't promise answers. It promises orientation — and that changes everything. Conclusion & CTA If you're a stroke survivor who feels lost, overwhelmed, or unsure where to look next, tools like turnto.ai represent a new way forward. Learn more at turnto.ai Read Bill's book at recoveryafterstroke.com/book Support the podcast at patreon.com/recoveryafterstroke You're not alone — and better answers are closer than you think. Footer disclaimer: This blog is for informational purposes only and does not constitute medical advice. Please consult your doctor before making any changes to your health or recovery plan. When Stroke Recovery Meets AI — Finding Clarity Faster with Jessica Dove London After stroke, finding answers shouldn't depend on luck. Discover how AI is changing stroke recovery with Jessica Dove London. Turnto.ai Jessica’s LinkedIn Support The Recovery After Stroke Podcast on Patreon Highlights: 00:00 Introduction to the Journey 09:17 The Birth of Turn2.ai 19:07 Navigating Information Overload 27:10 The Onboarding Process Explained 35:28 Real-Life Applications and Success Stories 43:57 Empowering Patients Through Collaboration Transcript: Introduction to AI for stroke recovery Bill Gasiamis (00:00) Hey everyone, if you’ve ever struggled to find information about tools, treatments, or resources that could actually help you on your stroke recovery journey, this interview is a game-changer. One of the reasons I’m so passionate about doing this podcast is because of my purpose behind it. And that purpose is simple, to connect people with information, to connect people with tools, and to connect people with other people. who truly understand what this journey is like. After a stroke, finding reliable up-to-date information is exhausting. You’re dealing with fatigue, brain fog, limited time, and often very little guidance beyond rehab. In today’s episode, you’re going to hear from Jessica Dove London, my new hero, the founder of Turnto.ai, a tool designed to help people like us find relevant stroke recovery information much faster with less effort and far less energy delivered straight into your email inbox. This is not a sponsored episode, but it is an episode about a solution I genuinely believe can change how stroke survivors find answers. Let’s get into it. Bill Gasiamis (01:13) Jessica Dove London, welcome to the podcast. Jessica Dove London (01:16) Great to be here Bill Bill Gasiamis (01:17) Sometimes when people send me emails, they go into the inbox and then they’re kind of like, I’ll look at that when I get back to it, when I get back to it, I get back to it. And I saw the email that you sent to me when you reached out to tell me about this amazing new product. And I thought, well, another amazing new product. There’s plenty of them. And usually the products that people kind of email me about are not relevant to Stroke. And people are just trying to get onto podcasts and all that kind of stuff. And I get it. I’ve got no issue with that. If they’re relevant, I love sending new information to people. And one of the biggest challenges is determining what’s going to be the most helpful thing. How can I get things out that are not just another thing to talk about for the sake of talking about it? And then I didn’t respond to your email because it kind of goes down to the bottom of the list when all the other new ones come in and I’ll get to that. get to that. And then I saw a link in my I comment on my LinkedIn and I thought, okay, this is familiar. I’ve seen this before. Let me check it out. And then I checked it out and thought, what an idiot. Why haven’t I contacted this person back quicker? This product is amazing. But before we talk about turnto.ai, give me a little bit of a background. I just want to get a sense of how it is that somebody comes up with the idea. I know what I’m going to do. I’m going to create a product that brings information to people. more rapidly than ever before so that they can decrease the amount of time it takes to learn new and amazing things that are coming up about their condition. Jessica Dove London (02:50) Yeah, well, Bill, I did really like your podcast. That’s why I linked in you as well. I actually really liked your podcast because, you know, from where I come from, my son has a rare type of cerebral palsy. We actually don’t have a podcast like this where it’s a patient-led, you know, quest for finding the most useful, cutting-edge, relevant type information. So I really liked your channel. But I guess where do, where do, you know, where do a lot of these things come from? from my lived experience. So when my son was 18 months old, he was diagnosed with a rare type of cerebral palsy, which is a little bit similar to Parkinson’s in his rare type. And when I went along, when he got diagnosed, I went along to his appointment, we knew he had something and I took a big research paper along systematic review and the doctor said, nothing you can do to help him. There’s no medication, surgery. She even told me, don’t bother reading those papers. And I just, went on this journey that maybe a lot of people listening relate to when you are given something or you’re recovering, we have this huge life change of wondering what can I do to improve my son’s quality of life? And this real question, like, can I do anything? He’s amazing as he is, but we want to unlock the whole world for him. So I just went on this journey for years, finding treatments for him. And we just kept finding treatments and some were incredibly life impacting. And almost all of them were in the medical literature. I just had to decipher them. I traveled the world, how did every world leader ended up studying neuroscience? We, we had a big YouTube channel where we shared our stories and I went to a huge conference with all these academics and this one world leader got up on the stage and she shared these incredible things coming for cerebral palsy, which actually is some relevance for stroke because there’s a lot of things that are free. They’re, sort of based on neuroplasticity. They’re very accessible. And I actually put my hand up and said, I shouldn’t have to fly around the world. to learn about cutting edge things that could help my son or help people right now. you know, I guess I just live this experience that think many people do where all the cutting edge information can be all over the place. It can live in these research papers. It can live in the patient community. It can live in those incredible healthcare providers, but you have to sign or in clinical trials, you know, you don’t know, you have to piece it all together and then work out what’s relevant for me. because you know, you could be sitting in a Facebook group, you could be listening to podcasts like this, but there’s so much time that is wasted and opportunity that is wasted while you’re trying to work out all these things. And for most people, you don’t have the world leading best healthcare providing team. Who knows everything doing that work for you. You have to do it on your own. So yeah, just live that problem of trying to find the cutting edge thing to help my son and you know, For two years, it took me two years, we did find a whole lot of things. Bill Gasiamis (05:40) Yeah, two years. my gosh. And I mean, you’d give more than two years to your son, but it’s not about that. It’s about, doing it more quickly than two years. And from stroke perspective, do you have a stroke? Your brain doesn’t work properly. And then trying to sit there and get through, data, texts, videos, all that kind of stuff. I only was able to find like very small amounts of time in between. ⁓ feeling terrible most of the time. And then, ⁓ my gosh, I’m feeling good right now. And then it’s a priority. Like what do I do now that I’m feeling good for five minutes or 10 minutes or an hour? And for me, I, I was very keen to kind of, understand what I can do to support myself. And I knew for certain there was stuff that doctors weren’t delivering when able to deliver, didn’t know about, weren’t telling me that if I did the research that, and I found that I could implement something that was easy for me to implement. for me, just perfect example would be nutrition. But in my conversations with doctors, when I asked them about, this something I can stop eating or start eating to help my brain? There was no information out. There’s probably nothing that wouldn’t matter. Just go about the treatment that we’re offering. And then as a mom or a parent, let’s say as a parent who has a child who has needs beyond the quote unquote normal. It’s like, I’ve got to do all these extra things as a parent for my child. And I’ve got to have my life. I’ve got to do work and do all the things that parents do other than just parenting. And then somehow in there, I’ve got to find a flight to a conference to the other side of the world to hear a researcher maybe, and it’s only like a maybe share something that’ll be life-changing and supportive. And that’s kind of… where I was at, was in the same place. And I thought, what I’ll do is I’ll create a conversation so that people can come to me. We can chat about it amongst other things, share stories. But then hopefully somebody on my YouTube channel says, do you know about this? And then that happened. And then that was a problem as well, because it’s like, I don’t know about this. I don’t even know where to begin to have a conversation about that with you. And if I needed to… do the research on something that I was asked about will take ages. Now, one of the questions I had recently was, you know about methylene blue? And it’s this ridiculously kind of current topic about improving mitochondrial function for people. And as a result of that, people are finding out how you can take that and they’re taking it, which I wouldn’t recommend. And, and now I don’t… The Birth of Turnto.ai And now I’ve got to go and do, I don’t know how many searches to find all the data on Methylene Blue and I don’t know where they’re hiding. Read them, spend my entire time to read them, know, spend all my time to read them and then somehow kind of give people feedback on what I’ve read because that’s the role that I’ve decided to play. And now that’s what they’re expecting of me, but it takes ages. It’s forever. So then a little while later, what happened was you, you said, you know, have a look at turnto.ai. check it out, tell me what you think. And then I did. And I was able to see the power of being able to have the research just sent to me in my inbox because I asked the AI to do it and it does it on a regular basis. And in a moment we’ll share about it. But then tell me a little bit about that transition for you from I’m traveling all over the world to nah, stuff that. I’m gonna do that from. my office in Brisbane, in Australia. I’m not going to travel the whole world to find out this information. It’s not efficient enough. How do you move from mum with a problem to mum with a massive solution? Jessica Dove London (09:31) I mean, I guess, you know, those first five years I was just full-time mom and just doing, you know, we did all the things we did into all the therapy centers. And I, you know, I guess it’s really interesting that question you had. you have these really tricky questions or people ask you questions or you’re on a Facebook group and you see people talking about something you’ve never heard about. Yeah. I was just trying to pull those pieces together because I had the capacity to do that reading. Often it was late at night. think one of the biggest challenges is often at the beginning of your journey, you don’t have the context. You don’t know the map that you’re even looking at. All you know is the impact it’s having immediately and the potential future impact and all those really hard things that you’re facing. so probably for those first five years, I was just pulling everything together messily and someone’s trying things, low risk things, all these different things, trying to get the best people to give us that advice. However, you know, after those five years, I went to that REITs big conference and actually initially got an AI grant to do a research project, an AI research project. And I had a really good friend get lung cancer, stage four lung cancer and a good friend get MS. And they just had the same problem that I was having. And so I just knew there was something here. And so initially what we did is we actually just brought all the treatments that exist for cerebral palsy in one place. And there were over 220 treatments and most patient knew about five to 10. And these are, science backed different protocol treatments people are doing and having some impact on. They having some evidence of things that are working. And so the problem is just really wild because you again, you’re told, I’ll just try these few things, but there’s actually legitimate scientific leading people with all these other ideas and some of it’s really working. So I just, I initially I did that. And then when my kids started school, ⁓ I decided to start a tech platform because I saw this as a really huge problem, but I knew I needed a world-class engineering team because I knew AI had to be part of this. And this was before all the LLM, all the open AI. don’t know if people’s familiar with AI, familiarity with AI is. Before all of this amazing sort of last few years, I was using sort of different, more sort of machine learning to try and just bring the data in and categorize it. but really just trying to make it accessible for people. Bill Gasiamis (11:51) Before we continue, want to pause for just a moment. If you’ve been listening to this conversation and thinking, I don’t have the energy to search research papers, Facebook groups, podcasts, and forums just to find one useful thing, you’re not alone. exact problem is why this episode matters. What Jessica has built with turnto.ai is a way to reduce the mental and physical effort it takes to stay informed. after a stroke. Instead of searching endlessly, relevant information is found for you based on where you are in your recovery and sent straight to your inbox. There’s a listener discount available which you’ll find in the show notes and I’ve also created a page with more details at recoveryafterstroke.com/turnto that’s recoveryafterstroke.com/turnto But stay around, listen to the rest of this episode before you go and check out recoveryafterstroke.com/turnto, to get the discount code. All right, let’s get back to the conversation. Jessica Dove London (12:55) yeah, I guess it was definitely a journey I didn’t go from, know, the first few years it was just heads down, fully in care mode, trying to deliver all the care, trying to access all the experts. And then slowly I just went on this journey to eventually being full time running this team of amazing people from the tech space. I knew this should be a tech solution because You know, I think one of the unfortunate things is, is amazing groups out there, amazing orgs out there, but they often are technology specialists. So I don’t build things that can continue to be relevant. They often make really high quality resources and then the resources are actually not relevant even for you doing a search. You know, you do a search and then what happens in a month when there’s something new that’s come out about that. So yeah, we’re on that journey and probably the cornerstone of what we’ve built is this belief we have that all the voices matter. And so research matters, patient experience matter, leading professionals, experts matter. And actually they sometimes can hold different pieces of the puzzle. probably unlike other tools that you’ll see out there and when we show what we’ve built and how we build it, that’s the key thing. The other thing we believe is that new information matters and it’s too much work for one person, let alone a doctor, a specialist can’t even stay up to date on the disease because know, stroke is actually got an unbelievable amount of things that are created every week. can be over 2000 new things every week in stroke that are being published from expert interviews to new research to clinical trials to patient discussions to incredible events. It’s just wild. Like there’s actually so much incredible stuff happening. But you can’t find it all and you can’t read it all. Bill Gasiamis (14:39) Yeah, absolutely. And that’s why when I had a little bit of a play with Tony, with Turn 2… It was cool because I’m not interested in everything that stroke has to offer me. The research has taught me, but I’m interested in certain things and I’m interested on things specifically that my followers and listeners on my podcast want to know about, you know, so I’d love to be able to bring that to them. So then I had a bit of a play and then we’re going to move to that. I’m going to share the screen in a minute and we’ll talk about that actual screen and the solution, but there is an onboarding process, which we’re not going to. show today but can we talk about it a little bit just to give people a sense of how people they’ll come across turn to and then they’ll go okay ⁓ i want to start and then i want to make sure i get information information for just the stuff that i’m interested in how does the onboarding work Jessica Dove London (15:21) Yeah. Yeah, I guess this is again, thing of like, you know, we’ve built a tool that you’re about to see where we want to keep you up to date, read every single new thing and just give you a handful of things. So how do we do that? And so the way we designed this is to find out what’s on top right now. If you’ve just had a stroke, you’re in a very different stage to one year post, two year post, five year post. the reality is of a patient journey is Bill Gasiamis (15:40) Hmm. Jessica Dove London (16:02) you are always changing, know, you know, we have things, new things come up and then you suddenly feel like you’re at the beginning again or new symptoms come up and you get very confused. Like, is this related? I’m like, I have to talk to my doctor. What’s happening here? I’ve just started a new medication. There’s always things happening. So we ask just five questions and the questions are just all about right now. and sort of some key different attributes around your recovery journey or your journey because Sometimes some information is less relevant for certain groups than others. I’m in a cerebral palsy space, your subtype really matters because it’s actually completely different neurology. And so you might find this incredible breakthrough and it just not be relevant for the subtype, which is actually the case for my son. My son has a very rare subtype, which makes like, you know, anything published on his subtype is like gold because you’re like, wow, a new sort of thing has come out. Yeah. So what we’ve done is, made the onboarding about what are you facing this week with your stroke recovery? You know, what is the symptom you’re worried about? And the thing about the tool is, you know, that week it’ll, it’ll go and read the thousands of new things and it will then match you according to what’s on top for you. And it’ll also go and do specific searches on your location. So if you’re living in Sydney, you’re living in anyway, Los Angeles, London, it’ll search for that week for stroke. what is happening in that city. And the reason that’s so helpful sometimes is there are groups, there’s new clinical trials, there’s so many things that are all these incredible people are putting on webinars, like online support, online educational things. So we match you to all of those things every single week. But yeah, really it’s what are you doing with dealing with right now? And then if you get to Sunday, cause that’s when we send our update out and you’ve got something new that’s come up, you just can talk or type and say, hey, I’m not interested, I’m now interested in keto and I’m interested in this and it will just make you, it’ll create new priorities. Cause that’s the real journey of living with a competition. Bill Gasiamis (18:05) I love that it does change at the beginning. It was all about fatigue. How do I improve my fatigue? And then later on it was like, how do I improve my sleep? And then later on it was after, you know, after brain surgery, it’s a completely different, uh, um, inquiries that I was making on YouTube, Google, wherever I was like, you know, how do I overcome a brain surgery, all that kind of stuff. Um, and then also at the beginning, some of those problems I solved like, then Jessica Dove London (18:25) Yeah. Yeah. Exactly. Bill Gasiamis (18:35) I thought, okay, what’s the next one I need to solve? Jessica Dove London (18:38) Yeah, that’s right. The funny thing about health information is though, cause one of the things we’ve built, if let’s say you’ve tried something though, and there has been new research that’s come out about post impact, you may get that in your update because, know, let’s say you did a surgery or you did sort of some sort of intervention there. Sometimes studies coming out about five years post that intervention. And actually that’s really useful for you because what if it, this new potential thing you should be testing for? I think the key to what we, Navigating Information Overload Have learned from building these tools is you don’t actually know what you don’t know. And like, I think most people here have had that experience of sitting in a Facebook group, listening to your podcast. You learn something new and you go, ⁓ I wish I knew this. ⁓ it feels like luck. And I think that is just a really challenging thing because your health is so much more important than luck, but it can feel like that. You know, I can literally remember when I’ve been in a Facebook group and someone first mentioned this surgery that we ended up doing. took us a year to make the decision, but it was like, ⁓ my goodness, what is this they’re talking about? And then I went to my, our surgeon and the surgeon was very, very dismissive even though there was huge body of literature behind this particular intervention. So then I had to find another specialist and so it begins. Bill Gasiamis (19:53) Yeah. That’s a great thing too, as well. Like if you could be facing roadblocks that are based on other people and that, and then if you don’t have like some kind of ammunition to take to them to say, but you know, how about this? That’s one of the challenges. Cause then, you know, they kind of say, well, there’s no data. I haven’t seen it. If I haven’t seen, I’m a doctor. Like, you know, what do you know? How are you going to be the perfect person that makes the decision? gatekeepers of information bother the hell out of me. Like I hate people who have information and think that because they have it, that they sort of hold the key to how that information is disseminated. But then also people who discourage people from doing searches on what may help them, you know, this is my life, it’s my condition. I wanna be able to find things to help me to make my life better. So I don’t have to be in the hospital system so I can go back to life. so I can improve things. So luck is not part of the equation. If I didn’t jump into that Facebook group today and didn’t see that post, I would have missed it for years maybe. Jessica Dove London (20:56) And this stuff just is always happening. It is pretty wild. And again, the reality is that there is just information is everywhere. And I think even for people who favor research, research takes years to come out. And who decides what should be researched? When we did our first research project, when I started this work, one of the things we did is we collected patient stories of treatment reviews. popular treatment at the time, had no research behind it in the cerebral palsy space, but very low risk. It was like an intensive physio type protocol. And I actually shared this with a whole bunch of academics and a world leader came up to me and said, she’s now going to study this treatment. Because again, you know, are not academics sitting in Facebook groups. or they’re not always, know, they’re not, you know, it takes years for these things to even begin to be getting researched. However, at the same time, are, like research has been, can be very, very helpful and it can also, you know, there are definitely a variety of things out there. Some things are snake oil, some things are, some things can look like snake oil and actually be the next best thing because there’s actually a sign, you know, reason why it’s working or we don’t know why it’s working. It is very hard to decide for all of this. Yeah. Bill Gasiamis (22:17) used to be hard. Now it’s a lot easier. Thank you very much. So I’m going to share my screen now so we can have a bit of a look at what we’re talking about. Jessica Dove London (22:19) Yeah. Bill Gasiamis (22:26) so this is the screen. Now, I’ve purposely resisted from clicking on the first two weekly updates at the top because I wanna kind of tell people what happened, why they’re there. But then I wanna go all the way down to the very first catch up that ⁓ I had with the software after I was onboarded, after I answered all the questions and did all that stuff. It came to me, it said, these are some things that we found for you. And, ⁓ it said it found 18 things. It gave me this, ⁓ bar chart thingy, me jiggy here, which is not a bar chart. It’s actually an audio file telling me what it found. ⁓ and it gave me top insights, six things, and it told me one thing that was near me now, just for context. said, I’m in Australia, in Melbourne, but I said I was in New York, New York. Okay. Just so that I can kind of get a sense of what happens when people from ⁓ other places in the world do a search. I kind of have an idea that if I had done the same thing, what type of results I would have got here. But the reason I did that is because I believe it or not, stroke survivors have reached out to me from New York and said, do I know any stroke survivors in New York? I’m in Australia, in Melbourne. Like technically that answer should be no. but I know heaps of people in other areas. But what I don’t know is what’s happening in those other areas. And what Tony found was ⁓ groups, meetups or something along those lines that were happening in New York for people. So I found that really interesting. So I could immediately do that search and get that I click near you, all right, I’m not in New York guys, but if I click near you, look what it found. Hybrid event stroke support groups at Mount Sinai, Sinai, I know I butchered that, but it’s. probably an event that is happening ⁓ in that area. Union Square, I think I know what that is. I think that is in Manhattan. And then it gives its thoughts. It says, this group could help you connect with survivors for emotional regulation and post-traumatic growth. Like, what? That was like a few minutes of searching immediately now. If I had even moved. to New York, it was a brand new place where I’m living and I want to connect with people, I’ve automatically found that. mean, that is fantastic. Jessica Dove London (24:58) So Bill, when you get your update, you go to the, I found you, you can actually flick through all of the updates. And for people as well, can, if you go to click on what I found you, or if you just go back into it and then you can actually flick through them all. So you can flick through the research, the expert interviews, the patient discussions, the online events. And also for people who like email, you can get it all in an email. That’s sort of an easier experience for you, but you can just really quickly flick. Bill Gasiamis (25:06) what I found. Yeah. Jessica Dove London (25:28) through all the relevant things that have found you. And it’s just matching to what you’ve said. So you would have said all those different sort of key things that are important to you. And then the whole thing we believe is we try not to use AI to give you necessarily a generic answer. We’re trying to use AI to find you the most interesting resources that already exist. Bill Gasiamis (25:30) Yeah. Yeah. Yeah, I love it. this one, this week’s daily update. So I’ve had a few of those updates and I’ve clicked a lot of them. And they, as I was going through my mind a few weeks after I logged in for the first time, I would then put in a new search. And then the most recent email that I got or update that I got was this one here. And It has found 17 new things for me and the top insights have been updated because one of the additional searches that I put in later after I did the onboarding was about hand spasticity. And then also I did, and look at this, I did a podcast with, a stroke survivor called Jonathan and it has already found it and brought that to my attention as if I didn’t know about it. And Jonathan Aravello shares his story. That’s an interview that I did with a stroke survivor a little while ago and it already knows that it’s there. And then if you scroll down, I found if you scroll down, you just go through other things that people are talking about. Vivastim is a new product that stroke survivors are talking about because it’s an implantable and it attaches to autonomic, to the vagus nerve and somehow it supports people to improve function and it helps with neuroplasticity and all that kind of stuff. I’m just stunned by all the information that came to me and… The Onboarding Process Explained And I had a question this week in my YouTube channel. Let me tell you what it is. And let’s see if we can just do a search and find some information on that product. STC30 stem cell treatment. I’ve got no idea where to start. How would I answer that question for the person? They asked me a lovely question. What can you say about the effectiveness of STC30 stem cell treatment? So I’m getting asked like I’m an expert in these areas. I don’t mind, but that’s the kind of information that people are looking for. They’re going, how do I find information about that thing when nobody else out there will talk to me about it? They’re kind of like doing a Hail Mary shot. They’re going, I’m going to ask this guy on the podcast, maybe he knows about stem cells. Who would know about that? But check this out. If I do ask a question, if I say,tell me. about ST. C 30. stem cells. I’m going to generate. And I love this part about it too, the searching and the thinking that it does. ⁓ What specific outcomes or improvements are you hoping to achieve? And I’ll just say. ⁓ Less brain fatigue. That’s brain fatigue. Jessica Dove London (28:52) It’s okay. It’s actually you can make spelling mistakes. Bill Gasiamis (28:56) It knows it’s smarter than me. Jessica Dove London (28:58) mean, AI is very good at that. And probably for people watching this, you what would be the difference of this with ChatGPT? Because ChatGPT is amazing and it’s going to get better and better. But the difference of people to understand is we actually have an intelligent data set on stroke. So what we’ve done is we’ve taken the past 10 years of all the stroke information. So from research papers, we’ve actually gone through YouTube and found webinars with experts. We’ve gone through patient discussions, we’ve collected resources. And the reason we’ve done this is because Bill Gasiamis (29:00) Yeah. Jessica Dove London (29:27) Again, I really love Chatjibity. I highly recommend people use it. However, the difference is our belief is all voices matter. So when you ask questions, we’re actually going to give you answers from experts, from patients and from research. So that would be the difference of this tool. And the reason it can take probably up to a minute to find you an answer is Stroke actually has, I Stroke has 450,000 resources in the database that we built for Stroke. So Stroke’s a really, really big database. I mean, it’s trying to look for that answer and then it’s trying to match you to it. I think that’s just, it hasn’t actually restarted. It’s just. Bill Gasiamis (30:05) It’s doing its thinking. It did seventy nine thousand searches. Jessica Dove London (30:09) And it’s trying to just match it to your profile, give you that answer. And it can get, there we go. Bill Gasiamis (30:15) Wow. And then here we go, ST stem cells is marketed as a supplement that claims to support cellular repair and regeneration, but its efficacy and safety are not well established in clinical research. So that’s like a little bit of ⁓ initial information. And then here you go, the patient view, which is so important in this, isn’t it? It’s important to find people who may have had a procedure and have something to share about it. That’s so, so helpful. And then what the research says, how many research papers has it got here? Wow. Look at that one, two, three, four, five, six, seven already research papers. And they’ll all have links to other research papers that, you know, made those ⁓ studies that sort of give those studies the initial information to get the ball rolling on them. And then, systemic review here which check Jessica Dove London (31:15) Sometimes there’s not actually even a full paper on that. I actually don’t know this topic, obviously, but if you go up to the summary, might even say, sometimes you might learn, there’s actually not specific papers on this. However, here are papers that are relevant. you click show style. It’s on the research here. you click post. So if you go down to what research says. Bill Gasiamis (31:31) Where’s the summary? do I do that? Jessica Dove London (31:37) You just scroll down, yep. And then you click show summary, see that pink little, but here we go. It shows you research trends, key findings, unknowns and mixed opinions, and all of it’s referenced. And that’s just because again, we’re trying to show patients as quickly as possible. Is there information? Is there mixed opinions? Because I think sometimes there’s been a tendency to have one answer to these things and there isn’t one answer. And sometimes there isn’t papers, you know? So we actually have trained our tool to Bill Gasiamis (32:01) Yeah. Yeah. Jessica Dove London (32:07) to sometimes not make up answers. And so, you know, we tested it on very rare protocols and it often says, hey, there is no protocol for your subtype. However, here are protocols that are being studied in other sort of use cases. Bill Gasiamis (32:19) Yeah. And then if I do this view source, this is cool too, right? It just goes directly to the article PubMed article. And you can read that. That’s brilliant. Okay. So then, ⁓ And look, here we go again. It’s found my podcast two times here. ⁓ that is brilliant. love it. And then I did this. went, I think I went back and then I asked the question here because I had like a thing that popped up in my brain today. Right. Somebody kind of said, Hey, have you heard about that? And, ⁓ somebody did that. And, ⁓ and then I just can go. immediately into that and go okay where is it i’m just trying to search on my Jessica Dove London (33:05) While you’re searching, guess the thing that we built with our weekly tool as well, so let’s say you really want to learn about STC 30. I think that’s it’s called. You can just put that in your weekly, your profile, and every week our tool will look for that specific topic because that’s the other thing. So if you click strengthen my profile, can you see that purple box down at the bottom? Yep. If you click on strength, you click on that, you can just say, you can type anything new in here and it’s going to then keep searching it. Bill Gasiamis (33:20) How do I do that? Why would I do that? ⁓ yeah? There you go, there’s all of my data that I put in at the beginning, New York, New York, early 50s age group, approximately 13 years post stroke, all the topics that I was interested in. And where would I put that? Would I put that here, add new? Jessica Dove London (33:34) Or if you Yeah, yeah. And if you start, then we’ll know that that’s at the top. Yeah. But you can, to be act, to actually be honest, you can actually, if you go back, I’ll show you an easier way. So at the end of every weekly update, there’s a huge box that just says, me anything new. but if you go back, I’ll show you something on the dashboard as well. Yep. So if you see, do you see want to do a deep dive, see how this says update me the top on the right. Bill Gasiamis (33:52) ⁓ dashboard. Jessica Dove London (34:13) next to ask, yeah, if you just talk at it and say, I’m now interested in this as a priority, it’ll then put it at the top for your next week’s update. Bill Gasiamis (34:13) ⁓ ⁓ okay. Next question I had a day ago, somebody wanted to know about red light therapy. So why don’t I do that? If I press that and then do that, right? Click this button here. Is that the one? Jessica Dove London (34:31) Or you can talk or type, whatever works for you. Bill Gasiamis (34:34) I’m gonna talk, let’s see if it does. Jessica Dove London (34:36) Let’s see if it works with the podcast, whether it’s taken them. Yeah, I think it’s not working just because you’re doing a podcast, because you’re using the speaker. Bill Gasiamis (34:39) Alright. ⁓ no. Okay, so I’ll type I’ll just say ⁓ red light therapy. Jessica Dove London (34:53) This won’t give you an answer. This is just going to go on to your weekly update now, Bill. Bill Gasiamis (34:58) Okay, okay, so if I if I do that Jessica Dove London (34:59) Yeah. And now, yep. So now it’s actually just added it to your health profile whenever you want to know. So for your next Sunday’s update, you’re now going to have red light therapy in there. But yeah, but the reason we put the voice box is it’s actually sometimes useful to talk a bit more like, Hey, I’m thinking about doing red light therapy. I’m really worried about this, this, this, just actually giving more context. Cause at the of the day, if there’s a thousand new things a week in stroke, you know, this is just a matter of how do you, how does Bill Gasiamis (35:11) my gosh, that’s ugly. Jessica Dove London (35:28) How does any sort of system get you what’s relevant? AI for Stroke Recovery – Real-Life Applications and Success Stories Bill Gasiamis (35:32) It’s a game changer. I’m telling you now. ⁓ I mean, you know that, I don’t know why I’m telling you, but you know that this is the one that was the weirdest thing, methylene blue. Do know it’s a food dye? Sorry. No, it’s not a food dye. It’s a clothes dye. I think it’s like a Indigo clothes dye and people take it. And it’s very risky because, ⁓ it’s very few people that, ⁓ actually experiencing the exact condition that’s related to, ⁓ Jessica Dove London (35:41) Okay. Really? Bill Gasiamis (36:01) neurological dysfunction or mitochondrial dysfunction that methylene blue can help for. And then if you take methylene blue and you take too much of it, ⁓ then it decreases mitochondrial function if you don’t have a need for it. And there’s no way of knowing whether you have mitochondrial dysfunction unless you have the right kind of doctor take you through that process and determine whether your mitochondria are functioning properly. I mean, not many people have access to that, but this is what happened when I, ⁓ put that in there, came up with a whole bunch of information again. This is just like the most obscure thing that everyone’s talking about now. And unfortunately, people are taking Methylene Blue ⁓ without knowing whether or not they’re a candidate. And when they request information from me, I want to be able to give them accurate information and don’t be like that. person who holds onto the data and then doesn’t release it. But I’m confident it could say if you’re somebody considering taking Methylene Blue, do not take Methylene Blue. is so, ⁓ it’s such a nuanced bit of like tool. It’s such a nuanced tool and you need to know like the most amazing people in that space and there’s probably only two of them in the world. So it’s like great that everyone’s talking about it. But I feel really confident now about having the information in front of me to share with stroke survivors. And I would not have felt like that if this tool did not exist. Jessica Dove London (37:34) Again, you could also put that into your weekly updates so that it keeps looking for that particular topic. Because I guess the challenge, the reality is, and the challenge for all of us is we hear these things or we don’t even know things exist. And I think, you know, there is the reality. Like I think you’re always looking for that one thing as well, right? Particularly with any sort of neuro condition, you’re like, is there something really big I’m missing? Bill Gasiamis (37:40) Yeah. you Jessica Dove London (38:00) You know, is there something that could really improve when you’re facing something that maybe, maybe there’s a symptom that won’t go away or, you know, in cerebral palsy, it’s a lifelong condition. So you’re all often like, looking for that. Is there something we’re missing kind of experience or there’s a new topic. like just to give you one example, which is a real example is I was worried about my son having osteoporosis. So I told the tool, I’m worried about my son having osteoporosis. I went to the doctor’s consultant and the consultant said, don’t worry, we don’t need to scan. He said we’re going try and them. But the doctor said, don’t worry. And then the week later, my son got very bad knee pain. We ended up doing an x-ray, which showed potential osteoporosis. I pushed and we got a dextrose. And doctor rings me and he says, yes, your son has osteoporosis. And I said, what can we do to treat this? And he actually told me. we wait for children to break their bones when they have cerebral palsy. Now, if you’re a wheelchair user and you break a bone, that could be a year of rehab for your life. Now I’d put this into the tool and in the period of two to three weeks, it had found me two papers studying children with osteoporosis with cerebral palsy and an expert interview. I said to the doctor, why are we not testing his calcium? Why are we not looking at his vitamin D? And the doctor said, you’re right. We need to test those levels. Now like, One, the reality is that consultant just can’t stay to date. Like I actually understand he’s busy. He’s actually serving lots of different conditions. And so like my passion and my hope is that we can do that work for people. because I have organized my son to get these blood tests now because we’re being proactive. Cause I don’t want him to break, break his bones. You know, I care more than anybody. He, know, it’s quality of life. And also when you have a label like cerebral palsy or stroke, Sometimes things can be disregarded, you know, it’s really, they think, ⁓ this is complex. We don’t really know. Well, maybe we just haven’t read the paper from three months ago or that really useful webinar from a conference that was last week. I’m talking about that exact symptom that is legitimate. So yeah, that’s my real passion, Bill is empowering people because, know, I think we all have these stories of being disregarded or. You know, and I do have a lot of hope for the future and I love medical professionals. I have some incredible people that I work with, but curiosity is just not usually the experience of most professionals when they’re, you know, they are just humans doing their best overwhelmed and usually not fully up to date. Bill Gasiamis (40:39) Yep. And they also don’t know what they don’t know. It’s no different to us, right? If they have, if it hasn’t fallen onto their lap and if they haven’t had a lucky day where they saw an article or, know, they’re in the same boat and as frustrating as it can be, and as much as you want to kind of dude, you know, you’re the guy leading my, my healthcare, you know, like I, I’m entrusting you with more than just this blasé attitude at that, like Jessica Dove London (40:43) Yes! That’s right. Bill Gasiamis (41:06) And that’s not helpful either. I totally get it as well. Jessica Dove London (41:08) That’s right. That’s right. You want to do it together. You know, I was on a call this week with not someone from stroke or cerebral palsy, but it was a consult specialist from another disease. I won’t mention what disease, but they said to me on the call, they picked up something from their desk and they said, I have a journal sitting here from early October and I’ve been trying to read it every day. But this person is a surgeon and is very, very busy. And they were telling me to build my tool, like this tool for doctors. She was like, We can’t stay up to date and we really want to, and we do. Like she will read that paper. But it’s such a burden on healthcare professionals. So my real hope in the future is that we go to our professionals and we look together at the evidence. know, there is that, cause you know, the truth is some world leaders obviously in a lot of professionals know a lot more and their lens is very useful of going, actually that is interesting. this is something we hadn’t thought about, or let’s look at this. Just that there’s time limitation. All right, sound good. Bill Gasiamis (42:08) I know they care. And when you’re a surgeon and somebody says, ⁓ emergency just rocked up through the door and it’s 1am, they drop everything and they go right. So then you want to give that person a break as well and say to my care what what do you want to sleep tomorrow morning? Okay, no worries, by all means sleep. And it makes complete sense why a journal could be on somebody’s desk and not get read. I mean, that happens with my taxes. They’re there forever. Jessica Dove London (42:19) Yeah. actually. Bill Gasiamis (42:35) and they need to get done. And I can come up with a million things that I prioritize over that thing because it’s actually a priority. I’m not saying that I don’t pay my taxes. I definitely do. But with a surgeon, you can understand where they would rather spend their time is helping people get through that particular situation that they’re finding themselves in. the, what is it like? It’s like, ⁓ by the way, there’s this journal there yet. I’m going to spend an hour reading that. what somebody needs surgery. No problem. Let’s go. I totally get it. I get it. And this tool kind of enables patients, I think, to have more information and take that to a meeting with a surgeon with a clinical, you know, in a clinical setting, wherever they are, and begin a conversation that perhaps wouldn’t have begun again. That information then does go kind of in that Jessica Dove London (43:09) That’s right. Bill Gasiamis (43:31) either at the front of the mind of that person or at the back of the mind of that person so that they can access it when they need it and then go, you know, I’m going to be curious about that. I’m going to go down that path. Or if you take that to your doctor or a clinician or someone in that space and they say, don’t worry about that, then that’s also a good sign for I need to find a new doctor. I need to find a new clinician, someone who’s going to take the feedback and the information that I bring them seriously. Empowering Patients Through Collaboration Jessica Dove London (43:57) Yeah. 100%. 100%. I think it’s that collaboration. know, we have a person on our team right now. He’s not the most knowledgeable, but just, and he isn’t the specialist, but he’s very supportive and really wants to look at evidence and is always helping us find the right specialist. And it’s just an incredibly wonderful experience to have someone who’s on that side of always validating. then she knows that we’re reading more than she is on some of these topics. And I want to help. don’t want to be doing this alone. Like that’s the other thing you want. You want people to help you and have the answers and give you better. You know, you don’t want to be doing the wrong treatment or wasting that, you know, I always think you can’t try everything even if lots of things worked. But you can do things that don’t work or you can do things that are risky. And I think for so long, has been very risk averse. However, there are so many treatments that are You know, have huge outcomes. You know, we, one of the things we did with our son, he started school in continent. And I listened to a podcast interviewing a world leader out of UCLA. They, um, you know, we’ve actually got a lot of these stories, barely we’ve been able to talk before about some of the things we’ve tried, but it’s a, an external device giving, uh, this is a different one building what we talked about, but it’s a device you put on your back. And it was this new breakthrough about, uh, the spine is connected to motor planning and he. within two days became fully continent. And this is a $300 machine. It was free. The protocol was free and he’s completely continent at school. Like that’s his whole life changed. And the reason I did it is because I listened to a podcast with a world leader and it’s heaps of evidence. There just wasn’t yet evidence in cerebral palsy because they just brought it to cerebral palsy from spinal cord injury. And his whole life changed and I actually have a friend who’s a world leading researcher in this space in cerebral palsy and me and him have spoken about this technology and it’s very exciting. But not everyone can go and talk to this world leading research to go, yeah, this is valid. This makes total sense. You should be trying this. And so how many people are incontinent because of that one particular insight that’s not being shared. know, there’s just so many stories like this of things that are low risk, that have really good. ⁓ potential to change people’s lives. Bill Gasiamis (46:17) Yeah, that’s brilliant. We’re going to obviously get the link to that particular device and we’re going to put it in the show notes. Jessica Dove London (46:23) We should do a session just on devices. I love technology. ⁓ Bill Gasiamis (46:28) Yeah, but that’s the beauty of it, right? We wouldn’t have had that information hadn’t it been for this particular product coming up in the search in the results. ⁓ Jessica Dove London (46:37) That’s right. So one of the things I tell Tony is I want new technology and new equipment. And so last week in my update, it found me a patient comment of someone who’s built a device, a hand device to hold things and they have a web link, but they themselves went and built this device. All the plans are online. And because I’m obsessed with new technology, it’s doing that for me. I’m also obsessed with like new wheelchairs and new, you know, know, new scooters and it’s all. Bill Gasiamis (46:44) you Jessica Dove London (47:06) I love this, like that’s one of my personal sort of like things I’m always looking for. But again, that tool is doing some of that, a lot of that lifting for me, because I can’t read it all. Bill Gasiamis (47:17) Yeah, brilliant. love it. I can’t read it all either. And I definitely don’t know what the obscure things are that people ask for my podcast. And I’m expected to know which is a really, it’s a really lovely thing. Like, you know, like people are coming to me for advice and I want to, I want to be the guy I want to be the connector. want to see people to read. Jessica Dove London (47:37) You can actually share that page when you ask Tony, you can do a URL and share that for your listeners so they can get access to it. Just so you know the bottom so they can just share it and see if it’s useful or not. And that’s the thing like it’s more about is it useful or not for you. Bill Gasiamis (47:44) Yeah, I will be doing that. Yeah, I think what I’ll be doing is answering people’s questions because they’re so lovely to ask them. What I’ll do is I’ll do a search for them on tourney. I’ll record the whole thing and I’ll tell them, you know, one of my stroke survivors who listens to my podcast wants to know about this information. Give me the data. We’ll come up with some research. I’ll answer the question. And then like, I’ll feel amazing that that happened relatively quickly as well, which is going to before for me to actually my gosh, I just had that feeling where I’m like that doctor who gets asked these questions and doesn’t know. So says, my God, I’m going to leave that unanswered or or I’ll tell them there’s nothing about that that we can talk about because there’s no information. I just felt like that doctor where somebody asked him the question and I was like, I’ve got no idea what you’re talking about. Just keep doing what you’re doing or what I’m telling you to do. Whereas now that goes away. That feeling of I don’t think I can help you, goes away. We might not be able to have the answers. We might find out that in fact there is nothing available yet in that space, right? So that’s kind of where Tony will also go. It’ll go, well, there’s nothing here. Jessica Dove London (49:04) and might just find things that are related because that’s the other thing. Like if I’d asked Tony about this, this technology, it’s called spinal. It’s confusing because there’s a few things called spinal stimulation, but it’s trans trans. I’m not going to, I’ll give, can put it in a note. So it’s a technical term, but in the cerebral palsy community, call it spinal stim. Yeah. If I’d put that in, nothing would come back because it was only last year that two research papers had come out about this. However, it would find related things because there is a lot of related concepts. that particular technology and that thinking. Like there was actually a surgery of how that was using the same, doing the same amount of healing. But the benefit of obviously using a machine that you put on your back is it’s not, or brain surgery, which is hugely risky or implanting devices and all that. It’s just not always answers. There’s not always evidence, but there is things, there’s not much happening. And that’s probably my last thought to share is just. Bill Gasiamis (49:49) Yeah. Jessica Dove London (49:57) There is so much happening and I think you’ve lived this bill, like there is a lot of new technologies, new treatments, lifestyles. There’s so much happening in the recovery space and you know, there’s a lot of hope to be had. And that’s one of my biggest feelings of this tool when I use it for myself is hope. literally it found me an advantage. my son is very adventurous and wants to be a, I do not want him to be this, but he wants to be like a wheelchair stunt person. And there was an online event about teenagers getting into skate parks. And I just had such hope that there’s all these people out there trying to make like a Yeah, I didn’t attend because I’m like, he’s only 10. I’m like, no, we can’t do this yet. Bill Gasiamis (50:40) I love that you don’t want to I love that you don’t want him to break his arm roller skating. Jessica Dove London (50:47) You Bill Gasiamis (50:48) I love it. love it. That’s what normal, normal moms do. Right. But there you go. Yeah. Oh, of course it does. That’s Yeah, I love it. Absolutely. Um, that’s exactly why I like Tony because it will do things that we’ve struggled to do for a long time is find resources, information, all that kind of thing. And it’ll do it quickly and it’ll do it. Jessica Dove London (50:51) That’s right. dad does take him to the skate park. His dad takes him. And he goes down. It’s terrible. It’s so scary. Bill Gasiamis (51:15) specifically for you and it’ll send it to your inbox. You don’t have to go anywhere. Now there will be a link for people to click on and go across and get a little discount or some kind of like a, can we talk about that briefly? Jessica Dove London (51:31) Yeah, yeah. So we, this is a low cost AI tool. So we charge two US dollars a week for that weekly update. And it actually costs us $2.80 per update just because we read a million tokens per person to generate that. And we want to provide the most valuable, those value and the most accessible, valuable focus. Not everybody can be spending $30, $40 a month on the really advanced AI tools either. But you can try it for free. So you can just try it for three weeks and see if it’s valuable because end of the day, that’s all we want. And you know, we want your feedback. If you’re like, I’d love it to do this, to do that. We’re a team that really just want to, you know, that’s the beauty of being a technology team is we can build some of these solutions pretty easily. So yeah, you can go through the link and get a 10 % discount, but you can also just try it for free and see if this is valuable for you. Bill Gasiamis (52:22) Yeah, I tried it for free for three weeks and the it’s like having subscribed to the full thing because you’ve got everything that it can possibly do in that three weeks. I’ve got a really good feel for it. So I’ll have that linked as well in the show notes. And then if you’re watching this video and you want to get a sense of ⁓ what this thing is like, what it’s like when I use it, et cetera, I’ll be doing my answers to red light therapy and STC 30. Jessica Dove London (52:29) Yeah, 100%. That’s right. That’s right. Bill Gasiamis (52:49) I’ll be doing all those types of videos. People will be able to see it. The website is turnto.ai. So it’s T-U-R-N-T-O.ai. I’ll have the links in the show notes for that as well. Jessica, thank you so much for reaching out, persevering when I was being a little bit slack with my inbox and then, yeah, kind of developing this tool with your team and bringing it to us. really appreciate it. that you’ve done that and that it’s there because it’s definitely going to improve. It’s going to decrease the amount of time that I take to find information to help me as well because I’m a stroke survivor and I’ve got my own stuff I go through. So thank you for that. Jessica Dove London (53:30) been great to be here, Bill Gasiamis (53:31) You’ve just heard how AI can fundamentally change the way stroke survivors find recovery information, not by replacing doctors, but by reducing overwhelm and helping us ask better questions. In this episode, we explored why stroke recovery information feels so scattered, how fatigue and brain fog makes searching harder and how tools like turnto.ai can bring clarity, speed and hope back into the process. If this conversation resonated with you, I encourage you to explore the tool for yourself. You’ll find a listener discount code in the show notes. More information at recoveryafterstroke.com/turnto, and remember this podcast exists so that no stroke survivor ever has to feel like they’re doing this alone. If you would like to support the work that I do here, you can support me on Patreon at patreon.com/recoveryafterstroke. Your support helps me continue recording these conversations and working toward my goal of a thousand episodes. Thanks for listening. I’ll see you in the next episode. The post Tunrto.ai for Stroke Recovery: Why This Tool Is a Game Changer for Survivors appeared first on Recovery After Stroke.

In Episode 100, Jamie and Matt reflect on a year that fundamentally reshaped how Matt experiences healthcare—as both a patient and a caregiver. Matt shares an update on his active surveillance prostate cancer journey, including lifestyle changes, monitoring, and learning to live with uncertainty.The conversation expands beyond Matt's diagnosis to include the realities of caregiving: navigating a father's dementia and hospice journey, processing anticipatory grief and loss, supporting a teenage daughter through surgery, and helping a mother recover after a stroke. Matt speaks candidly about caregiver burnout, moments of emotional paralysis, and the importance of asking for help.Together, Jamie and Matt explore how grief lingers, how recovery often proves harder than the crisis itself, and why healthcare must focus on what happens after discharge. Episode 100 closes with a powerful reminder: it's okay not to be okay—but it's not okay to face it alone.

Double Vision After Stroke: What Jorden's Story Teaches Us About Brainstem Stroke Recovery Double vision after stroke is one of those symptoms no one imagines they'll ever face—until the day they wake up and the world has split in two. For many stroke survivors, it's confusing, frightening, and completely disorienting. And when it happens as part of a brainstem stroke, like it did for 45-year-old attorney Jorden Ryan, it can mark the beginning of a long and unpredictable recovery journey. In this article, we walk through Jorden's powerful story, how double vision after stroke showed up in his life, and what other survivors can learn from the way he navigated setback after setback. If you’re living with vision changes or recovering from a brainstem stroke, this piece is for you. The Morning Everything Changed Jorden went to bed preparing for a big day at work. By morning, nothing made sense. When he opened his eyes, the room looked doubled—two phones, two walls, two versions of everything. He felt drunk, dizzy, and disconnected from his own body. Double vision after stroke often appears suddenly, without warning. In Jorden's case, it was the first sign that a clot had formed near an aneurysm in his brainstem. As he tried to read his phone, he realised he couldn't. As he tried to stand, he collapsed. And as nausea took over, his vision became just one of many things slipping away. He didn't know it then, but this was the beginning of a brainstem stroke recovery journey that would test every part of who he was. When the Body Quits and the World Keeps Moving Even when paramedics arrived, the situation remained confusing. “You're too young for a stroke,” they told him. But the double vision, vomiting, and collapsing legs said otherwise. By the time he reached the hospital, he was drifting in and out of consciousness. Inside the MRI, everything changed again—his left side stopped working completely. He couldn't move. He couldn't speak. He couldn't swallow. His ability to control anything was gone. For many survivors, this is where the fear sets in—not only the fear of dying, but the fear of living this way forever. Understanding Double Vision After Stroke Double vision happens when the eyes no longer work together. After a stroke—especially a brainstem stroke—the nerves that control eye alignment can be affected. Survivors often describe it the way Jorden did: blurry, overlapping images difficulty reading nausea when focusing a sense of being “detached” from reality exhaustion from trying to make sense of their surroundings In Jorden's case, double vision wasn't the only issue, but it shaped everything that came after. It influenced his balance, his confidence, and even whether he felt safe leaving his home. Three Weeks Missing: The Silent Part of Recovery Jorden spent nearly three weeks in a coma-like state. Days blurred together. Friends visited. Family gathered. He remembers fragments, but not the whole chapter. When he finally became more aware, nothing worked the way it used to—not his speech, not his swallow, not his limbs, and certainly not his vision. This is something many survivors aren't prepared for: Stroke recovery often begins long before you're fully conscious. Starting Over: The Fight to Stand Again Inpatient rehab became Jorden's new world. It was full of firsts, none of them easy. The first time he tried to sit up. The first time he attempted to transfer out of bed. The first swallow test. The first attempt to speak. Everything required more energy than he had. And yet, small wins mattered: “When my affected hand moved for the first time, I felt human again.” Double vision made everything more complicated, especially balance and spatial awareness. Even brushing his teeth triggered trauma because of early choking experiences in hospital. Still, he kept going. Life Doesn't Pause for Stroke Recovery Just like so many survivors say, the world didn't stop for Jorden to recover. On the very day he left inpatient rehab, his close friend—who had also lived with paralysis—died by suicide. Not long after, his dog passed away too. It felt unfair. Cruel. Like everything was happening at once. But even in that darkness, Jorden found a way to keep moving. Not fast. Not perfectly. Just forward. Learning to Walk Again With Vision Working Against Him Double vision after stroke made walking terrifying. Every step felt unpredictable. Every movement demanded complete attention. He used a slackline as a walking rail. He held onto countertops, walls, chairs—anything that would keep him upright. He practised daily, even when the exhaustion was overwhelming. This is something survivors often underestimate: Vision problems drain energy faster than physical limitations. Your brain is constantly trying to make sense of visual chaos. Of course you get tired faster. Of course progress feels slow. But slow progress is still progress. Humour as a Survival Tool Many survivors rely on humour to keep themselves grounded. For Jorden, it showed up in moments like these: His leg falling off the footrest of a wheelchair and being dragged without him realising. Gym sessions where he pushed through fatigue—even after peeing his pants slightly. Laughing at situations that would've once embarrassed him. Humour didn't erase the trauma, but it gave him permission to keep going. “Now it's me versus me. Every step I take is a win, even if no one sees it.” What Jorden Wants Every Survivor to Know Recovery doesn't end after 12 months. Double vision after stroke can improve—even years later. Brainstem stroke recovery isn't linear. You're allowed to grieve what you lost and still fight for what's ahead. The simplest achievements matter. Hope is not naïve—it's a strategy. His story is proof that even when everything falls apart, life can still move forward. If You're Living With Double Vision After Stroke You are not alone. Your progress might feel invisible. Your days might feel slow and frustrating. But your brain is still rewiring, still adapting, still learning. And you don't have to navigate that alone either. Take the Next Step in Your Recovery If you want guidance, support, and practical tools for rebuilding life after stroke, you're invited to explore the resources below: Read Bill's Book: The Unexpected Way That a Stroke Became the Best Thing That Happened Join the Patreon: Recovery After Stroke This blog is for informational purposes only and does not constitute medical advice. Please consult your doctor before making any changes to your health or recovery plan. Jorden Ryan: Living With Double Vision After Stroke & Finding a Way Forward He woke up seeing double, and everything changed. Jorden's journey through double vision after stroke shows how recovery can begin in the darkest moments. Jorden’s Facebook Highlights: 00:00 Introduction to Double Vision After Stroke 03:15 The Day Everything Changed 10:26 When the Diagnosis Finally Made Sense 16:32 Surviving a Second Stroke 21:47 What Recovery Really Feels Like 32:16 The Emotional Toll No One Talks About 44:57 The First Swim After Stroke 54:08 Finding Light in the Darkest Moments 59:28 Living with PTSD After Stroke 01:15:01 Being Told “You'll Never…” by Doctors 01:26:40 Finding Meaning After Stroke Transcript: Introduction to Jorden Ryan’s Double Vision After Stroke Bill Gasiamis (00:01) Welcome again to the Recovery After Stroke podcast. I’m Bill Gasiamis. And if you’re listening right now, chances are stroke recovery feels confusing and isolating. I get that. I’ve been there. Leaving the hospital, feeling lost, desperate for clarity and unsure of what comes next. That’s why this podcast exists. Recovery After Stroke gives you real stories and expert insights that help guide your recovery so you can feel more confident, informed. and in control of your progress. And so you never have to feel alone or uncertain again. Today you’ll hear from Jordan Ryan, a 45 year old attorney who woke up one morning and nothing worked anymore. His story is raw, honest, and filled with moments that every stroke survivor will recognize. Fear, frustration, identity loss, and the courage to begin again. But I won’t spoil the episode. I’ll let you hear it from him. Jordan Ryan, welcome to the podcast. Jorden Ryan (00:58) Thank you, Bill. Happy to be here. Bill Gasiamis (01:01) Great to have you here. So if I recall correctly, your stroke was in March, 2024. So not that long ago. What was life like before that? Jorden Ryan (01:10) Life, I would say, was pretty normal. I didn’t have any symptoms or anything and I was a attorney. I walked to work every day about two miles and everything was going well. So right up until the night that I went to sleep, I had no symptoms at all. Bill Gasiamis (01:26) What kind of person were you then? Your routine, for example, and your relationships, where were they at? What kind of life did you lead? Jorden Ryan (01:34) I was awesome, right? No, just kidding. Yeah, they were good. Like I had a lot of friends and work colleagues and they did a lot. Like I was mostly a social person and went out a lot. So not home that much. I mean, I made a lot of friends in my loft, like down the halls were a lot of friends, but I lived by myself. Bill Gasiamis (01:55) ⁓ Well, if you thought you were awesome, I’m going to go with that. I got no problem with you thinking you are awesome. What about your health? Did you have a sense of your health? You know, we often talk about how we felt and what we were like and how energetic we were. Did you have a sense of where your health was at now in hindsight? Jorden Ryan (02:17) No, I did not. Actually, ⁓ I had a deviated septum from somebody hitting me in the face a while back from me trying to stop a fight. And so it took three surgeries to finally get it correct. Like they had to take a piece of my rib and some of my ear to straighten out my nose. But anyways, I say all that because it made me gain a lot of weight and I guess have sleep apnea. I didn’t know that, but you know, the girl I was dating at the time told me. So anyways, I got it fixed. And I had just seen a person to help me lose weight, the doctor and everybody. so I thought my health was good. And I had probably maybe a year and a half ago, I got into a jet ski, just knocked on conscious when I hit the water. So they did a cat scan and I didn’t know, but I thought that when they did that, I was fine. I was healthy. I didn’t know it would take an MRI to know that stuff. So I felt. totally fine until the event. The Day Everything Changed Bill Gasiamis (03:17) So after the nose surgery, things started to improve with regards to your weight and your sleeping. Yeah. Jorden Ryan (03:22) I don’t know that, like, I tried to get a CPAP machine before my surgery and yes, I was starting to work out more but I was still a little bit tired I guess but I mean nothing like, un-normal like, really bad or anything like that. Bill Gasiamis (03:38) Yeah, I do hear that sleep apnea is kind of that strange kind of a thing that people don’t realize they have until somebody diagnoses it and says to them, this is why you feel so drained, so tired all the time. And then they get it resolved in one way or another and things improve, especially with a, sometimes with a CPAP machine. So, ⁓ but then you’ll fit an active and you were pretty well. So take us back to that moment of that first stroke or what? What was it like? What happened? Jorden Ryan (04:08) So when I had ZPAP like to get a diagnosis or whatever they sent something in the mail and you just put it on your finger it was not as comprehensive as an actual sleep study and they said well that will be fine anyway so I got the machine it was very hard for me to sleep with so it would keep me up it did the exact opposite of what it was supposed to do so anyways that night I went to bed I had a big day the next day work call international call and I was gonna be the only one on the call, only attorney on the call. And so I woke up, I could not sleep, which was kind of normal with the CPAP machine. So I watched a movie and then went to sleep maybe an hour before it was time to wake up. And I went to bed and my alarm went off and I got up and I felt like really strange. I saw double, basically like I felt like I’d been drinking all night or something. Then, ⁓ I called into work and said, I’m sorry I cannot help you. Like, I was looking at my cell phone, which I do all the time, and I couldn’t read it or anything like that. being, you know, kind of naive, I think I took a quick shower, like, rinse some cold water on me, thinking maybe that would fix it. No, that’s ridiculous, but I thought it would, and when it got worse, that’s when I called on my one. Bill Gasiamis (05:35) Yeah, how long did they take to arrive? Do you feel Jorden Ryan (05:38) Mmm, I felt like forever, but I think it was pretty short. I lived in the city So the ambulance was right down the street. So I think like maybe 15 minutes or something like that Bill Gasiamis (05:49) Were you able to let them in? Jorden Ryan (05:52) I was, I, you know, the dispatch 911 person said to make sure I unlocked the door first. I thought I was having a stroke, but I fell down on my knees and laid against my bed and it was very difficult to go open the door to let them in. So yes, I was able to unlock the door and I did that. And I just started throwing up like more than I’ve ever vomited before in my life. Like something was really wrong. my leg went out. I didn’t know that it like couldn’t move at all. I just fell backwards and it was kidney due to throwing up. So then they came and I was still able to stand and talk and I felt, I mean, other than throwing up and double vision, I felt fine. So they told me that I was probably too young to have a stroke and that maybe it was just ready to go. So I was thinking that, okay, well I’ll just go to the hospital and you know, get checked out and I’ll come home early. But it seemed to get worse as things were going. I pulled myself up onto the gurney the EMTs had and I remember thinking like I’ve got to go to the hospital now and they were like being nice and getting my stuff and my phone and whatever else and if I threw up they were getting the trash can and I remember thinking I didn’t care if all of my stuff was stolen. I need to go to the hospital now. So we definitely got up there. When I was kind of in and out of consciousness by that time and I got to the hospital and they checked me out like an actual MRI. And when I was inside of it is when my left side of my body completely quit working. So I didn’t know what was going on. I mean, I had no clue. So I pulled myself out of the MRI. And some people get claustrophobic or whatever, but this was a square machine and because I felt sick already and half my body quit working while I was in there, it really put fear in me to get out. Bill Gasiamis (07:59) ⁓ So you had the right to the hospital, they saw you rather rapidly before they got you into the MRI? Jorden Ryan (08:10) The EMTs did see me pretty quick. They did not think I had a stroke, so it wasn’t as maybe punctual as possible. they were still… I mean, the fire department, I think, was maybe a quarter of a mile from my house. So they got there pretty fast. Bill Gasiamis (08:27) Yeah, okay. So when you got to hospital, what was that like? What happened then? Jorden Ryan (08:33) Yeah, by the time I got to the hospital, I was barely able to be coherent at all. Like someone would say, hey, Jordan, I would bring me to for a second, like, what is your phone number? And I could answer, but then I would be out again. when they were taking me to the MRI, they kind of with me. And this was the first time that I was frightened for my life. I think that one of the nurses was like, I can’t believe they’re going to waste the time to do MRI on this person. He’s gonna die anyway. There are people that need them. Machine. Bill Gasiamis (09:04) Wow, they didn’t say that, did they? Jorden Ryan (09:07) Well, I was like, couldn’t talk, couldn’t move. I don’t know if they said it for real, but I think so. I believe that’s what they said. then I was like, this is not how I die. I’ve done so much crazy stuff. can’t be just cause I was going to work early in the morning. ⁓ Bill Gasiamis (09:22) Wow. So you have a sense that that’s what they said while you’re being, while you’re on the bed being moved to the MRI. Jorden Ryan (09:32) Well, I was in going to like a holding area, like a waiting area to do MRI. Yeah. And so they left me and I couldn’t move. And so it was pretty scary. Yeah. And then after the MRI, the nurse did say, you know, we need to call your family. And so I did unlock my iPhone and I remember her calling, but it’s kind of hazy in and out of that. And I think They said, need to call the family so they can say their goodbyes. I think I overheard that. And I was like, what is going on? This can’t be this serious, right? So I really do believe I did hear that though. Bill Gasiamis (10:12) Seems like they may have very quickly upgraded your condition from vertigo, which they originally said when they arrived and seems like they kind of knew that something else dramatic was happening. Jorden Ryan (10:19) Yeah When the Diagnosis Finally Made Sense That’s correct. I wish it would have been just ready to go. Right. But it was all of a sudden went from, you know, pretty good news or decent, extremely dire consequences or like something bad was going to happen. Yes. Bill Gasiamis (10:42) Yeah. How old were you in 2024? Jorden Ryan (10:46) I was 45. Bill Gasiamis (10:49) Yeah. And do you have a sense now? Do you understand what it was that caused the stroke? We’ll jump back into Jordan’s story in just a moment. But first, I wanted to pause and acknowledge something. If you’re listening to this and stroke recovery feels confusing and isolating, I want you to know you’re not imagining it. I know exactly what that feels like. That’s why I created Recovery After Stroke to bring you real stories and insights that guide your recovery and help you feel more confident, informed and in control. And if you’d like to go deeper, remember to check out my book, The Unexpected Way The Stroke Became, The Best Thing That Happened, and support the show on Patreon at patreon.com slash recovery after stroke. Jorden Ryan (11:34) Yes, I do have ⁓ an aneurysm in my, ⁓ in the brainstem. can’t, it affected the pontine area and the salabella. Like I cannot remember the nerves. Unfortunately, I’m sorry. The veins that it’s in, but it is really big and the blood being kind of, ⁓ kind of mixed around. mean, like because my vein is so wide, the clots can form just. Yeah. Bill Gasiamis (12:03) Okay, so with an aneurysm, you’re at risk of it bursting, but then because of the different shape, the high pressure and the low pressure systems that occur in the aneurysm create a different blood flow. It causes the blood to turn into a clot and then perhaps get stuck there. And then when it gets big enough, it can break off or move and then it causes the clot. Jorden Ryan (12:31) Yeah, I don’t know if it breaks off and or just makes a clot and get stuck in there, but same concept, I think. Right. And so, yeah. Bill Gasiamis (12:40) Okay, so then you know that now after they did the MRI, what happened then? Did you have to ⁓ go through some kind of a procedure to sort out the clot and to remove the blockage and to fix the aneurysm? What was the situation? Jorden Ryan (12:59) Yeah, unfortunately they cannot fix aneurysm. They are just throwing as much medicine as they can, like all the tools that they have at the disposal at this time. But after they found out I had a clot, they’re just kind of like, let’s see what happens now. So that is when I went kind of again unconscious in probably about three weeks. I do not remember very much at all. Bill Gasiamis (13:26) Okay. Was that because they were, were in an induced coma to help you with it, with the healing? Jorden Ryan (13:32) I don’t think it was induced. think it was just my body went into a coma. mean, at the time I thought probably I was just very tired because I’d only slept an hour, but I mean, three weeks is a long nap. So a lot of my friends come in to visit me in the hospital, but I was like, I felt like just tired, but I didn’t feel bad. Like I was going to die or something. But so it was very strange because I felt very coherent. Like every day is just a different day. but my body like wouldn’t move like I could tell my left hand to move and it would not. So, but other than that, like, ⁓ I felt normal so to speak. Bill Gasiamis (14:13) I can see those three weeks. Did you have a sense that you had a stroke? Did that actually sort of say you’ve had a stroke? Did you understand that for the first time? Jorden Ryan (14:25) Yeah, I understood that I had a stroke, but I just didn’t understand what that meant. Like, for example, to sit up, which I would do in my whole life, I was not able to do that anymore. So during that three weeks, they would have a hoist system to move me to a couch. So I wouldn’t get bed sores, I think, you know, just precaution, but that was like a really scary, like I did not like that at all. was, which would normally be super easy. ⁓ Yes, they said I had a stroke, but I had no idea how bad it was. Bill Gasiamis (14:58) Yeah. family and friends. You had people rally around to do people have to fly. Excuse me. Do people have to fly in or come from out of town or were they all nearby? How, how did you go and see that? Jorden Ryan (15:13) I think that my sister put something on Facebook, on my Facebook. And so I had people close by and I did have people fly from a couple of different areas because at that time I think I was in ICU. So, you know, that may be the last chance I had to talk to me. So they did come say goodbye, but the hospital for so long, I mean, people got me flowers and I would think that would be as long as possible, but then those flowers would die. and people would bring plants and when those died, I mean, wow, that’s really a long time to be in the hospital, you know? And the plants died because I couldn’t water them because I’m paralyzed, so, at that time. Bill Gasiamis (15:54) Yeah, how long were you in hospital in total? Jorden Ryan (15:58) The first stroke I was probably, I got out May 17th, but that’s out of the inside rehab that what do you call inpatient rehabs? think that I was in hospital for maybe three weeks, maybe a month. Like, you know, they downgraded me from ICU for a week and then sent me to the internal rehab. Bill Gasiamis (16:23) Yeah, so the stroke was March 22 and then you got out of hospital in May. Jorden Ryan (16:29) That’s great. In mid-May, yeah. Surviving a Second Stroke Bill Gasiamis (16:32) Yeah. And you said that that was the first stroke. So was there another stroke? Jorden Ryan (16:37) Yeah, it’s crazy. So I had my first stroke and then I really tried hard like no sugar, no pop, no alcohol. I did everything I thought is best I could and even in rehab they had me bake cookies and I didn’t eat them because they had sugar in them. And then I had another stroke when I woke up to go to rehab. So that was October 7th. So it was, it started out with just my hand wouldn’t move like it should like I was regaining everything back pretty well from the first stroke. And I thought I was Superman basically. I was healing pretty fast and I was like, I beat it. This is great. And then right back to being in a bad stroke and being a wheelchair and all of that. Bill Gasiamis (17:25) So the same issue in the cerebellum near the pons again caused another clot or was it just something else that happened? Jorden Ryan (17:34) No, you’re right. It was the same thing, basically affected the same areas of my brain. So they say that your brain with spasticity can do like a detour. So now I have a detour of a detour, basically. So my brain had just rewired and was working pretty decently and then that area got damaged as well. Bill Gasiamis (17:57) Okay. And were you on blood thinners or something to help thin the blood to kind of minimize the risk of another blood clot or? Jorden Ryan (18:06) Yes, I was on the Eloquist, so I thought that that would be enough, but it was not. So now I am also on aspirin, but it’s just a small pill every day. I think that, like I said, they don’t really have a whole lot they can do. So they’re just telling me to take this medicine out for the best and maybe it will happen again and maybe it won’t, but they can’t operate on it because the risks outweigh the reward. Like there is a Good chance of death. Bill Gasiamis (18:37) Yeah, understood. How long did you spend in hospital for the second incident? Jorden Ryan (18:42) I was out, ⁓ towards the end of November. think mid and like either the second or third week in November. Bill Gasiamis (18:52) And then when you left hospital that time, you left with the deficits, which had kind of eased up or you didn’t really have before the, after the first one, is that right? Jorden Ryan (19:04) Yes, that’s right. I will, will wheeled out in wheelchair and had no use of my leg or my arm and my face was not really healed from the first stroke, but a little bit and I still had that too. I could not talk. I couldn’t eat. I couldn’t drink. Like, I mean, I could, guess, but not how, yeah. So like holding glass to my face would come all over down my face and stuff. so This area right here always felt wet. Like it felt like I was in a pool, even though I wasn’t. So I couldn’t tell if I had food all over me or what have you that I would have to rely on people to tell me. I could chewing a salad is, I mean, it was really, really hard. That was kind of the, as I advanced, that was something I could do. My first stroke, I could not, you know, a steady is it. I don’t know if you know what that is for using the restroom. It’s like a basically a dolly. put you on and I had a really hard time even trying to use that. I went through a lot of swallow tests. I could not swallow my own saliva. So that was very difficult for me. ⁓ They brushed my teeth and I felt like I was gonna die. I could not breathe. Like probably for that went on for like five minutes. Like, I mean, I could breathe, sorta, but it was very difficult. Bill Gasiamis (20:29) They brushing your teeth for you and it, and it, and triggered some kind of a reaction or. Jorden Ryan (20:34) Like the yeah, the saliva that you have in your mouth that is I mean was enough for me to drown in basically I guess Yeah Bill Gasiamis (20:45) So it wasn’t the actual tooth brushing. It was the saliva that was being generated that you couldn’t. Jorden Ryan (20:50) I so. didn’t know for sure what it was, right? Like, but I’m pretty sure was alive. It was something I couldn’t manage. That’s for sure. And it just tasted like toothpaste probably because I just had done brushing my teeth. But they did give me a peg tube so I could get food and nutrition and water in me. However, the way that they installed it the first time was ⁓ caused ulcers in my… I think in my colon, so I had to go back to the ICU. Bill Gasiamis (21:24) Yeah. Such a dramatic time, right? A lot of stuff going wrong. What’s going through your head at the time? Because you went, like we said, like it was a year earlier, everything was going fine. Everything was all okay. And now you’re dealing with all this stuff. How do you, you know, what are you saying to yourself? How do you feel about what’s happening to you? What Recovery Really Feels Like Jorden Ryan (21:47) I wish that I could give you like a really good answer, but to be honest it was more like, why is this happening to me? I can’t believe this is happening. I’m too young. Like I have to take decent care of myself. I cannot believe this. I mean, when I was in the hospital, I was watching like my 600 pound life and like, I’m just saying that I was, I thought, you know, at least that healthy, but at that time I was really devastated by what was going on. Bill Gasiamis (22:16) Yeah, you would be, it makes complete sense, right? How do you go from being quote unquote normal? Everything’s just going along as it always has. And now all these hurdles that come your way that are really challenging to overcome. you probably don’t have the skillset to deal with them in such a dramatic short amount of time. Jorden Ryan (22:17) Yeah. Yeah, I think that’s right. And I think probably if it would have just been on me, maybe I could have, but I was like, I’m going to be such a huge burden to my family in my way life is going to be so bad. Like, I was just like, how is this happening? You know, I don’t smoke and like, I don’t do heavy drugs or any of that stuff. So what is going on? And then they said, well, you must drink a lot of energy drinks. And I was like, no, I don’t drink any energy drinks. So they’re like, we don’t know what’s going on then. So just that was. So for me, I really didn’t know what was going on. Bill Gasiamis (23:15) Yeah. And in hindsight, it was just random. It’s just one of those things with the aneurysm and how can you possibly, how can you possibly deal with it when you don’t know that it’s happening to you? Similar to me, like I had a brain hemorrhage three times because of a blood vessel that I was born with. I wasn’t having the best lifestyle, but I also wasn’t causing it. I also didn’t. I wasn’t able to solve it. Everything was kind of handed over to other people. It’s not, it was nothing. It was not up to me. And I had to just kind of go through it. Jorden Ryan (23:51) Very similar. was, you know, couldn’t be in charge or control anything basically, like even really simple things. I mean, I had a diaper on, I couldn’t even go to the restroom by myself. So it was just very hard. It was a lot of stuff all at once, right? Like, it wasn’t just like I a cold or something. It was very difficult. And at first, when I was there, I couldn’t talk. So people would come and visit me but and to me what’s very strange is that my voice sounded exactly the same before the stroke which it didn’t in real life I was probably like I have no idea what I sounded like but people couldn’t understand me so I would say something to them and they’re like sorry I can’t understand you but in my head I said it perfectly it sounded like me I can hear ⁓ like my slur now but I could not at first Bill Gasiamis (24:47) Yeah. Yeah. It was there somebody that you met who helped support you and guide you through those really sort of tough bits early on, like was there kind of a mentor or somebody that came out of nowhere and just helped you navigate this? Jorden Ryan (25:06) ⁓ I don’t know really like who navigated like how it happened, you know, I had a chaplain that came in there maybe a doctor would help I Didn’t have my phone or anything at the time But when I was able to do that I saw your channels and stuff and so I listened to it and probably the totality of a lot of things there wasn’t like a one person or one thing that helped me really a lot so I remember being kind of upset at you because you said it was the best thing that ever happened to you and that was it was too new for me. I was like, what do you mean? That’s not possible. And a nurse came and said, well, you have the beautiful blue eyes and that my eyes are green. So I was like, well, maybe my hair will grow back and I’ll have blue eyes. Maybe it’ll be the best thing that ever happened. But yeah, I mean, I wasn’t really mad at you. I just said the time I could not accept those that verbiage. Bill Gasiamis (26:02) that is perfectly understandable. And it’s exactly why I chose the title, not to piss people off or make people upset while they’re recovering. In fact, I never expected that people would find it so early on in their journey. I just thought it was a story I was gonna tell and it was gonna go out there. But of course, the very first time I spoke about my book a few years ago on YouTube, the very first comment was a negative comment along the lines of, Similar to what you said. It was a bit more rude. It wasn’t so polite ⁓ And I and I was like, ⁓ no, no, no, you guys have got it wrong I don’t think I think you missed the boat. No, sorry. You missed the point the point being that It was really terrible when I was going through it for three years But when I came out the other side, there was a lot of personal growth. There was a lot of ⁓ Things that I had appreciated that I’d done that I’d learned that I’d overcome etc that became the reason why I was able to say it was the best thing that happened to me because I started a podcast, I wrote a book, I’ve spoken publicly about it, I have this platform, I’ve created a community, all these things, right? So the things that I didn’t know that I was lacking in life before the stroke, I thought my life was complete, waking up in the morning, going to work, coming home to the family, cooking dinner, paying the bills. paying the mortgage, the car lease. I thought it was all cool, all complete, but I was kind of unhappy. There was a lot that I was lacking in my life. And only because of the stroke journey, the end result of the podcast, the book and all that stuff, did I realize, ⁓ actually the… Aftermath, the things that I have grown and discovered were the best things that happened to me. And it was because of the stroke. It’s such a weird and dumb thing to say. Like I can’t even wrap my head around it, that I had to go through something so dramatic to accomplish some amazing things. I wish I would have just done it before the dramatic events. I wish there didn’t have to be one. And that being said though, I’m 13 years. post stroke, the first one, and I still live with the deficits. I still have problems sleeping on my left side because it’s numb and it’s burning and it tingles and all that kind of stuff. When I get tired, I still have balance issues when, ⁓ you know, sometimes my memory is a bit flaky because of it, but you know, a little bit, I still have deficits in my muscles and spasticity and all that kind of stuff and it hurts. I’ve accepted that part of it. how it feels in my body, but I’ve also ⁓ gone after the growth. Like I’ve really, ⁓ seriously, dramatically gone after the post-traumatic growth that comes from a serious episode. And what I hope- Jorden Ryan (29:10) explaining that in other episodes. was just my friend that I had heard and I was still like too bitter to hear that. Right. And now I kind of make sense. Like there are a of things that I didn’t appreciate as much as I should have. All the cliches, know, kind of true. Like I wake up and like that is a good day then because most of my stroke, both of my strokes came from when I was sleeping when I woke up. So kind of like Bill Gasiamis (29:21) Yeah. Jorden Ryan (29:38) Even being in the hospital, I saw more sunsets than I did in my regular life or post stroke, whatever you want to call it. I definitely get it and I can appreciate what you’re saying now, but after that time, was just more difficult. Bill Gasiamis (29:45) Yeah. I definitely come across people regularly, even though ⁓ I’ve been speaking about it for a little while, who come across the first podcast episode that I’ve done, that they’ve found in the 370 odd. And then they hear me say that again. And then there’s also, there’s sometimes a repeat of that incident where I know exactly where they’re at. Like I know exactly what’s happening. I know they don’t know that. And then what I hope that happens is say in three or four years, they can, when they go, there was that crazy guy who said stroke was the best thing that I wonder what that was about. I’m going to go get that book now and I’m going to read it. And I’m going to see if I can, you know, shift my mindset from perhaps something that’s been bugging me to something that we can grow from. And the book has got 10 steps to recovery and personal transformation. It not 10 steps to getting your perfect walk again, or making your hand work perfect again, or you know, getting rid of your deficits. It’s not that kind of book. It’s an inspiring book. We’re trying to give people some tools that they can use that doesn’t cost them any extra that will improve the quality of their health and their life. And it doesn’t matter how injured you are because of a stroke. That’s what the book helps people to do. I love challenging people. I’m not, of course, you know, I’m not intending to make people think that I promote. stroke is something that they must experience as ⁓ you know. Jorden Ryan (31:23) the ⁓ Bill Gasiamis (31:26) Yeah. ⁓ It’s not on audible. I am going to remedy that at some stage. I’m going to remedy that and I’m going to get people the ability to listen to it because ⁓ Jorden Ryan (31:46) Well, I will be your first customer, hopefully. Bill Gasiamis (31:49) Yeah, a he-man. Jorden Ryan (31:51) cannot read because my eyes are cro- like not crossed but I have double vision so they are off I cannot read so but yeah Bill Gasiamis (32:01) ⁓ After your three weeks in ICU the first time, I think you began inpatient rehab. What were those days like going through that first few motions of trying to get yourself up and about? The Emotional Toll No One Talks About Jorden Ryan (32:16) Yeah, it was very emotional, right? because you want right away, I thought just to get back to where I was. And I mean, I read some other things and I had friends of friends send me stuff and that chapter of my life is over. I mean, it was a good one, but it’s time to rewrite another one, right? Like I have to move forward. So the whole journey was really difficult. Probably took me longer than most people, but, ⁓ I was very lucky in the fact that I had a friend that had told me like, hey, you have done hard things before you were, you know, in Muay Thai, you were a attorney, you can do it again. And then in my mind, I was like, you’re not a brain doctor. What are you talking about? Leave me alone. So even though the expression was being really nice internally, that’s what I was thinking. Then I saw something like, um, it was, you know, I think it was a PT, a physical therapist who said, think that you’re gonna heal yourself in three hours a week or a day or whatever, that’s not it. Then I had another friend who told me that his sister had a stroke and she wished she would have done more during recovery. So I eventually got to the point thinking like, well, all these doctors are saying it depends, which is a fair answer, right? And I tell clients that and they hate it. But I thought that’s better than absolute no. They’re not saying and so they’ve made it to me like, well, maybe I won’t get better, but it’s not going to be from me not trying. I think another one of the people on your episodes ⁓ saying like they were always very positive and I was like, that’s not me. That’s I’m not 100 % going to be better. That just wasn’t my attitude during it. I mean, it’s good. wish I would have been, but unfortunately I wasn’t. But it kind of. Over time it’s gotten better, but at first it was very difficult for me. Bill Gasiamis (34:17) Yeah, that’s completely understandable. ⁓ You had, did you have some small wins in rehab that kind of made you shift a little bit slowly and kind of realize you’re making ground or things are, you’re overcoming things. Jorden Ryan (34:35) Yes, I did. I was very lucky in the fact that, I mean, I would just notice my therapist face like when my affected arm started to work or I did something, they didn’t say like, that’s unbelievable. But it was kind of like I was making progress faster than a lot of people. And I’m not saying I’m better. I was very lucky and I would never come to other people, but they were like, wow, that’s really amazing that you’re able to do that. So it was, it felt good. Being able, like, even just to move my finger, like, in my defective hand for the first time was huge, and then I was able to use my thumb to… I feel human again. I mean, to be honest with you, when I couldn’t talk and I couldn’t move and everything, it just felt weird, like it wasn’t me. Bill Gasiamis (35:22) Yeah, absolutely. So were there some setbacks during that time as well? Jorden Ryan (35:27) There were some setbacks. I, again, I watched one of your episodes and a gentleman told me, like I said, he had the fatigue set in later on in his journey. And so one of the things I was like, well, I’m so lucky that I don’t have that because I go to the gym pretty often. And that would be devastating to have fatigue. And then I also had fatigue. I mean, to the point where I didn’t want to move around at all. didn’t want to get out of bed hardly so there’s setbacks in the fact that like my my sister and brother-in-law luckily took me in I mean they were like ⁓ angels so to speak but they live in a big one bedroom app like one one floor house I meant to like a ranch style and just going to the bathroom was a setback because it would take forever to walk down the hall or whatever I mean it was my gate it was a walking style was Pretty hilarious there, you saw me. Bill Gasiamis (36:27) And then fatigue doing that walk also then ties you out. Jorden Ryan (36:34) Yeah, just walking to the bathroom did tire me out. So, like, to brush my teeth, I’m already scared of, like, not feeling well. Plus, walking all the way there and brushing my teeth and walking all the way back, it would be… I would really have to get my strength together to do that. Bill Gasiamis (36:53) A journey, a proper journey. Jorden Ryan (36:55) I had to do it because I didn’t want to wet myself or soil myself, but it was very difficult. mean, looking back, it’s like, wow, that stuff was so easy now. But at that time, it was not easy. was very difficult. Bill Gasiamis (37:11) Yeah. I remember being in a similar situation and I don’t have that far to go to the toilet from my couch where the lounge room is and the TV is. But I remember going to the toilet and getting back to the couch and then being completely wiped out. that’s it. I was done for hours, done for hours, just sitting there resting and then hoping to get enough energy to get back up off the couch and be okay. Um, that was very early on. That was probably a few, maybe about four five months after the second bleed, it was still very dramatic. And I couldn’t really appreciate how ⁓ I took for granted that trip before that. Like it was just, it never crosses your mind. Jorden Ryan (37:55) You wouldn’t even think about it, right? Like getting out of a car to walk to the house was very difficult for me. Or when I came back, I would just fall on my bed because I was worn out. But before that, before my stroke, I would not ever think about that kind of stuff. Yeah. In a wheelchair at first, but I walked around the house with a walker and like two laps inside the house would wear me out. That’s maybe one. Bill Gasiamis (38:11) Yeah, hell no. Jorden Ryan (38:24) Like, one hundredth of a mile is not much, or not even close to a kilometer, and that would wipe me out completely. Bill Gasiamis (38:32) Yeah. You find yourself thinking about the steps that you’re taking. Are you putting a lot of brain energy into the actual task? How your leg is moving? What was the process like for you? Jorden Ryan (38:44) Yes, my- so all the things that your body does without you thinking about were affected in me. Like blinking, I have to think about it. To move my arms at the same time, I have to think about it. So to walk was- I had to really be like, okay, which foot goes first? Left foot. Okay, now what foot goes next, right? It sounds ridiculous, but that’s really what I was like. My mind was, I had to think every time like learning to walk. I was like, what hand goes in front? with what foot? Like it was, I mean, very, very basic, like to the beginning, right? Like before elementary school, like it was, so everything I did was taxing mentally because I just had to think about stuff that you don’t normally think about, right? Like Okay, I should breathe. It wasn’t quite as bad as that, but that’s pretty close. Bill Gasiamis (39:37) Wow, So in the notes that we shared between us, you mentioned something about the first time you were taken out of hospital ⁓ to go and eat, I think. Tell me a little bit about that story. What happened then? Jorden Ryan (39:53) Sure, so I noticed, to start a little bit further back, I lost my hearing. It wasn’t when I first had my stroke, but when I was in rehab, they were actually changing my diaper. And so I would lay on each side and I noticed when I laid on the side, I could not hear them. They were telling me to roll over or something. And so I had lost my hearing completely. Then, um… When I got out of the hospital, my friends and family and whatever got together and took me out to eat and the noises were so loud that my senses were too heightened. It was confusing to me. I had a lifetime of going out to eat with friends and going to drinking or whatever. This was just a lunch and I couldn’t really handle it. It was almost too much for me. The car ride from maybe a three hour car ride, had to close my eyes because I would feel sick if they were open. it was, I realized just how different my life is gonna be, right? Bill Gasiamis (40:59) Yeah, did that make you want to avoid those types of events? Jorden Ryan (41:02) Yes, I have to push myself to do that kind of stuff because I don’t know, I think it’s easy to become depressed, right? Like, it’s easy to just be like, I will just sit here on the couch, watch TV. I don’t really watch TV, but… And even that is hard with my eyes doubled, but I mean, like, I push myself to hang out with friends or go to eat or something. But it’s very difficult. I would rather just stay home. If you just ask me, like… I mean, I’m always excited to go out with people, that’s not what I mean, but it just is easier to stay home. Bill Gasiamis (41:37) Yeah, I understand that easier to stay home. It’s a trap as well, isn’t it? It’s a, if I stay home, I don’t have to deal with all those difficulties, all those challenges. I don’t have to overcome anything. I can just have the easy way out. But then that you pay a price for that as well. That’s not, it doesn’t work like that. You have to pay the price of, well, then you don’t go out and then you’re alone again. And then you’re in your thoughts again. Then you don’t interact with people again. And It’s not the easy way out. seems that way, it’s potentially leading you down a path that you don’t want to go down. Jorden Ryan (42:11) You’re exactly right. I tell people that because I’m so lazy, I try so hard now because I don’t want to have that life like that forever, you know? So I try very hard now so I can be lazy if that makes sense. Bill Gasiamis (42:26) That makes complete sense. love it because it’s kind of like you’re lazy. Jorden Ryan (42:31) Right, exactly right. You know, because going to the bathroom, if that’s hard forever, that’s gonna be terrible. I gotta get up and walk and have to go out with people. then life is not as hard, hopefully, because you’re doing the things, right? So. Bill Gasiamis (42:47) Yeah, yeah, and you’re getting all the genuine awesome things that come from interacting with people, going out, being ⁓ in public. ⁓ I know what you’re saying about the kind of the earning our lazy kind of thing, right? Because I would say to myself, ⁓ Saturday, I’m gonna go hard. Now, hard for me might’ve been just to literally go to an event and stay an hour longer than I normally would have stayed, whether it was a family event, a party or whatever. And then I’m gonna be really exhausted tomorrow. I know that tomorrow I’m gonna be really, and I’ve got nothing booked in. I’m gonna do absolutely nothing for the entire day so that I can go out and go hard tonight, whatever tonight looked like, whatever that was gonna be like. And that was where I earned my recovery, my lazy. I’m sitting on the couch and I’m watching TV or I’m reading a book or I’m not doing anything. That’s exactly how I kind of used to talk to myself about doing nothing on the following day. Jorden Ryan (43:54) That is a good way to put it, earn your laziness. Like that is exactly what I did. I did something hard or out of my comfort zone and then when I was lazy I felt better about it. If I just wanted to stay home and watch TV, I mean I would have won the lottery basically, you know, like that would be my life. But because that is not what I want to do, doing hard things and then being lazy is a good way to look at it. It would make me feel better about myself. people and everything just kinda makes it harder to be depressed. Bill Gasiamis (44:32) Yeah, agreed, 100%. I would encourage people to get out as much as they can. ⁓ Now, I’m very interested in your thoughts about this. Your first swim, I wanna know what that was like, cause I had a first swim as well. I remember my first swim after waking up from surgery, not being able to use my left side and needing to rehabilitate it. ⁓ What was it like for you to experience that? The First Swim After Stroke Jorden Ryan (44:57) Yeah, so I’ve been swimming before I can remember when I was a kid. So like being by a pool was very scary for me because I thought if I fell in, I could not like get out. And I got in the pool with a life jacket to try to walk and doing I don’t know what this stroke is called where move both arms like that. But only one would work at a time. But I’ve been doing it forever. So it was so strange to be in the pool and not both my arms work together. It was almost like I didn’t expect that that late in my recovery It was not that long but still it was strange to me probably maybe a month after I got out of the hospital so luckily my mom took me to the pool quite a bit and Pushed a wheelchair even though it’s really heavy and she is older so Bill Gasiamis (45:50) Yeah, I went to the pool for the first time during rehab. They asked me if I had anything particular I wanted to work with or a particular exercise I wanted to do. And for me going into the pool, I felt safe that I couldn’t fall over. So we kind of did aqua aerobics and my left side wasn’t working well, but in the pool you couldn’t tell that it wasn’t working well. then put on a, it just felt normal. It felt normal. It kind of. ⁓ appeared like it was working normally, but it felt strange because the water pressure on my affected side, that was different. Feeling the water pressure on my affected side for the first time was really strange. What was cool about it is they gave me a life vest, so there was no chance of falling over, drowning, dying, or anything like that in the water. And it was really a real relief because my body felt really free for the first time. And then as I got better and we started to get out and about, One particular summer we went to a ⁓ waterfall here near where I live. And in the pond at the bottom of the waterfall went for a swing. But the difference is ⁓ fresh water ⁓ is different from salt water. And I had never swum in ⁓ fresh water. Jorden Ryan (47:11) Yeah, there’s a big difference here, right? Bill Gasiamis (47:14) Wow, you’re heavier, you sink quicker. And I went for this very short distance swim and I was completely out of breath and fatigued like really rapidly and needed somebody that was with us to help me get out because I hadn’t realized how much more taxing it would be to do the swimming motions or do all those things and stay afloat. ⁓ And it was really scary because it was the first time I learned that. Jorden Ryan (47:17) Yeah. Bill Gasiamis (47:42) I am not as capable as I used to be ⁓ in the water. Jorden Ryan (47:47) Yeah, I think that brings up a good point for me is that people that try to help me tell me like, be careful. There’s a table there or something like very obvious, right? But they don’t know what I’ve been through and what I can see what I can’t. have to be ⁓ appreciative of them saying that stuff instead of annoyed. Like I usually am so yeah. I did a triathlon in the ocean and it was so much easier. I was pretty happy. I was the other way around. I’m used to swimming in fresh water and then in salmon and salt water and that was all post stroke. But I can know what you mean. There’s a huge difference. Bill Gasiamis (48:27) What’s your Yeah, you’ve done a triathlon post stroke. Jorden Ryan (48:33) No, I’m so sorry. I meant before stroke. ⁓ Yeah, I did one back when I was healthier, but it is hard for me to even raise my arm. I can kind of do it now, but so I just did water aerobics actually today. And I mean, I am the youngest person there probably by seems like 30 years, but in the worst one there, like you can definitely tell I have a stroke. Yeah. Bill Gasiamis (48:59) Yeah, yeah, yeah, yeah. What’s cool about, what’s cool is that now there’s competitions where people can go and compete ⁓ after they’ve been, like the Paralympics is a classic example, right? And all the events leading up to the Paralympics where people can go and compete, get physical, even though they have deficits. That wasn’t something that was possible decades and decades ago. It’s a fairly new thing. I love that even though people are injured and they’ve had difficult times, perhaps their limbs aren’t working correctly. Some people still decide, I know I’m gonna be a competitor still, I’m gonna be with one arm, with one leg, with whatever my, whatever I have left, I’m gonna do the most I can and compete as much as I can to be the best in my particular sport. I love that about the things that people can access today about participation in sport, even though they’re injured. Jorden Ryan (50:02) Yeah, for me, it is much different. Like I used to be a very competitive person and now it’s me against me, right? The me against the stroke or whatever. Like I don’t care that somebody can run really fast. Like, I mean, that’s good for them, but for me getting outside and even getting to the event was difficult. Now to, you know, sit in a tricycle or whatever it happens to be is just, it’s more like a golf or something like that where it’s just you against you, you know, so. It is good that they have that kind of stuff, I think. Like, I’m looking at bikes for mountain biking with three wheels and stuff, so. Bill Gasiamis (50:39) Yeah, I love what you just said you against you. It’s like you against your mindset. Jorden Ryan (50:45) I think it’s just… I don’t want to say me against the world but everything is so… ⁓ difficult I guess? Like everything is a win so if I get in a car to go to the event if I get a bike that I can ride even a tricycle like that’s win if I can finish the event well that’s a win before it was like what place that I get now that’s not important to me I mean sure I guess is this not as important as it was before. Bill Gasiamis (51:15) Yeah, your priorities have shifted. Jorden Ryan (51:18) Yeah, very much so. Like, I think that I have a lot more empathy for people that are disabled. It just clearly opened my eyes. And even though I work in the law, I am used to disability act or whatever. And I was like, these people, now I totally get it. You know, so I understand like why they should have these laws in place. So here in the States, I mean, Bill Gasiamis (51:44) Yeah. Yeah, same with us in Australia. mean, there’s lots of laws to try and protect people who have a disability of some kind, injury, whatever you want to call it, so that there’s less discrimination, so that there’s more services, so there’s more access. ⁓ It’s one of the best conversations that people have because they kind of say, well, we know that this particular service that is going to be provided is going to be provided for all the population and 93 % of the population, for example, it’s not a real number, will be able to access it beautifully. What about the other 7 % who are not gonna be able to access it? We need to think about them. We need to think about how they’re going to go about ⁓ traveling on this service or accessing this service or getting in and out of this particular office or building and all that stuff. is taken into consideration in the design and planning phase now. So you can move around Melbourne, my hometown, in a electric wheelchair or a regular push wheelchair. And you will not have to worry about getting on a train, getting on the public transport, a bus, the tram, ⁓ going down a curb, all the curbs are ⁓ angled down. So this beautiful, nice smooth path towards the road and then up again. Jorden Ryan (53:13) Yeah, that sounds very nice. I think I was just ignorant to people’s needs, I guess. And now I learned firsthand how important they are, right? So I was just like, man, that’s a lot of money to do that. But it makes sense if someone says, well, we have 99 bathrooms, but you can’t use any of them. It doesn’t do me much good, right? So to have this kind of, yeah, right. Bill Gasiamis (53:22) Yeah. Yeah, what’s the point? Finding Light in the Darkest Moments ⁓ Now, the thing about stroke is that unfortunately life doesn’t get put on hold for us to recover from it and then let us get back into life as if we were okay. And I remember going through the third bleed and then a couple of weeks later, literally two weeks later, I think, maybe about a week later, my mother-in-law passed away. And then we had to have her funeral before my brain surgery. and my wife had to deal with all of that, right? You also, you lost one of your friends soon after you got out of, I think it was at rehab. Jorden Ryan (54:19) It was the day I got out of, ⁓ like inside the hospital rehab, inpatient rehab, like he was a good friend and he also had, I think a something to do with he had a tumor on his spine or something that was removed, but it left him slightly paralyzed. Like he was, he had both arms and I remember being in the hospital being jealous of him because Such a little thing like, wow, this guy can go to the bathroom by himself. I wish I could do that, right? But unfortunately, yeah, he died by suicide the day that I got out. It was devastating and very hard. I mean, that was somebody I planned on spending a lot of time with because he lived in the same city that my sister took me in that I was going to hang out with. I mean, not just about me. It was just sad that that happened, obviously. Bill Gasiamis (55:14) Yeah, of course, man, that’s pretty sad. And also, then your dog passed away. Jorden Ryan (55:22) Yeah, so this guy, he had told me my last message with him, well almost last was, we didn’t ask for this, but we’re gonna get through it together. And then, you know, he took his life, so that made me seem like, what should I do now? Then my dog died, which was a big deal to me because, okay, now I have all this time to pet him or play or whatever, and you know, it was pretty dramatic. dick dab that, but I felt like I was in a country song. Bill Gasiamis (55:55) How did you get past it? Jorden Ryan (55:56) I don’t know, think that you you kind of learn to just roll with the punches as I say because there’s so much in life that I can’t control that I mean, just, stuff happens right? You just have to do your best and I try to tell people like, it’s very easy to be in darkness or the negativity but it is my job to open up the light, open the window or whatever, not literally the window but to see all the good things that are happening. around me. So I mean, there are so many amazing things. So I have to open that up and not stay in the darkness too long. I can’t stop from happening personally, like this part of my life, but I can get out of it. Like luckily I have those tools, so to speak. Like I can be like, okay, this is happening. This is amazing. Or my family is healthy or whatever it happens to be or just people being really nice, seeing that, right? But I did have, my hand was like clawed and I would open the door and some people were nice and be like, let me get that door for you. Well, I cannot open my hand to let go of the door. It would almost knock me over several times. So kind of funny. Bill Gasiamis (57:13) always funny opportunities like to things to laugh at in that moment. I remember being wheeled in my wheelchair when I first got out of hospital, out of the hospital ward and we were just going around the hospital grounds just to get some sun. My wife was pushing me and I couldn’t feel my left leg and it fell off the, you know, where the feet sit in the wheelchair, the footrest. It just fell off the footrest and it was getting dragged. beneath the footrest and kind of the wheel of the wheelchair and it was kind of getting dragged and I couldn’t feel it had no idea but my wife was struggling to push the wheelchair Jorden Ryan (57:54) She’s like, is wrong with this? It’s so hard. Bill Gasiamis (57:57) She was going, well, this so hard to push. And then we had to have a look around and realize the reason it was hard to push, because my foot is under the wheelchair and I have no idea that it’s there and it’s getting stuck. ⁓ We laughed about it because what else are you gonna do at that moment? It was pretty ridiculous and funny at the same time. Jorden Ryan (58:16) That is exactly right. I would say that if I had to give credit to one thing, it would probably be my odd sense of humor now, right? Like there’s so many things to laugh at that it’s hard to say, Matt. That situation you had, it could have been really devastating to you or whatever, or you can be like, that is pretty funny, right? So I had something similar happen to me. My foot came off the wheelchair, but it just stopped. I didn’t feel it. my leg, but I mean, it felt like I ran over a rock or something like, so similar, not the same, but similar to me. Like, didn’t know if my leg would ever come back, you know? So people are all different levels of their journey. Like I was not upset, but I was surprised to see people in patient rehab. They could walk so well. like, Hey, we are really struggling over here. We’re in a wheelchair. That’s not the right attitude to have, but that’s how it was, you know, Bill Gasiamis (59:12) Yeah, absolutely. Jorden Ryan (59:14) are fine, get out of here, let us sick people alone, leave us here, so. I mean, I am lucky in the fact that I’m getting a lot more back than I thought that I would, so everything from now on is icing on the cake, so to speak. Living with PTSD and Double Vision After Stroke Bill Gasiamis (59:28) Bonus for sure. I think you talked about PTSD around brushing your teeth, right? How does that show up in your daily life? Do you have moments when that kind of rears its ugly head? Jorden Ryan (59:42) Well, I just moved into a new house and the bathroom is right next to it and it’s not so bad now. But when I had to walk and it was more difficult and I had PTSD and self-diagnosed. So I don’t even know if it’s a real thing. It was very scary, right? Like it would almost like giv

The Revolutionary Role of the Vagus Nerve in Bioelectronic Medicine: Dr. Kevin J. Tracey, president and CEO at the Feinstein Institutes for Medical Research and author of "The Great Nerve: The New Science of the Vagus Nerve and How to Harness Its Healing Reflexes,” details the historical context and recent advancements in harnessing the power of the vagus nerve to control inflammation without causing immunosuppression. The conversation explores the journey from early experimental stages to the recent FDA approval for treating rheumatoid arthritis through vagus nerve stimulation (VNS) devices. He also delves into the potential applications of VNS in treating other inflammatory conditions, mood disorders, and the science behind non-invasive lifestyle techniques and commercially available devices. The episode provides valuable insights into the future of bioelectronic medicine and its potential to revolutionize medical treatments.

Dr. Hoffman continues his conversation with Dr. Kevin J. Tracey, president and CEO at the Feinstein Institutes for Medical Research and author of "The Great Nerve: The New Science of the Vagus Nerve and How to Harness Its Healing Reflexes.”

Dr. Ian Winship is an Associate Professor and a former Alberta Innovates Health Solutions Scholar in the Department of Psychiatry at the University of Alberta. He is also Director of the Neurochemical Research Unit there. Ian is interested in understanding how we can reduce the damage early after a stroke and ways we can improve recovery in people who had a stroke a long time ago. His research also examines changes in the brain that lead to symptoms in other brain disorders like schizophrenia. Much of Ian's free time is spent on or near the ice rink. He coaches his son's hockey team and his daughter's ringette team, as well as playing on his own recreational hockey team. In the summer, Ian enjoys being outside, traveling, visiting the mountains, and relaxing at the beach. Ian received his bachelor's and doctoral degrees in Psychology from the University of Alberta. Afterwards, he conducted postdoctoral research at the University of British Columbia before returning to the University of Alberta to join the faculty. In this interview Ian shares more about his life and science.

Women and Stroke: Recovery, Prevention and Health Equity In this episode of "Stronger After Stroke," host Rosa Hart, BSN, R.N., SCRN, talks with Tamika Burrus, M.D., a stroke neurology specialist, about how stroke uniquely affects women. Together, they explore critical differences in how women respond to stroke treatments, such as thrombolytics (alteplase and tenecteplase) and mechanical thrombectomy, why recovery can look different for women, and what steps health care systems can take to close the gender gap in stroke outcomes. Dr. Burrus shares insights on physical, cognitive and emotional recovery challenges that women often face after stroke. The conversation also highlights disparities in stroke rehabilitation access, follow-up care and stroke prevention — particularly among Black and Hispanic women, who face a higher risk. Listeners will gain practical takeaways on how women can reduce their stroke risk through lifestyle changes, the importance of early screening by primary care and OB/GYN providers, and how health care professionals can improve outcomes through education, advocacy and equitable care. In this episode, you will learn: How estrogen impacts the cardiovascular system The unique physical, cognitive and emotional recovery challenges women face after stroke Disparities in access to rehabilitation and follow-up care for women compared with men Lifestyle changes that can significantly reduce stroke risk for women at any age How racial and ethnic disparities affect stroke risk among Black and Hispanic women The role of primary care and OB/GYN providers in early stroke risk screening Common misconceptions about stroke in women The most important next steps for women recovering from stroke How nurses and health care professionals can improve stroke outcomes and equity Key takeaway:Women experience stroke differently — biologically, socially and systemically. Improving prevention, early detection and equitable access to care can help save lives and support stronger recoveries. About our guest:Tamika M. Burrus, M.D., is a stroke neurologist with Norton Neuroscience Institute. Dr. Burrus earned her medical degree from the University of Iowa in Iowa City. She completed her residency in neurology at the Mayo Clinic in Rochester, Minnesota, and a fellowship in vascular neurology at the University of California, San Francisco. She is a fellow of the American Academy of Neurology and co-author on several national guidelines for the American Academy of Neurology and the American Heart Association. Dr. Burrus believes it is important to ensure that patients feel as if their interaction is a partnership. She strives to help her patients understand their brain and spine and to collaborate with her regarding the best treatment plan for them. She has specialized expertise in telemedicine and was one of the early adopters in the field of teleneurology. Dr. Burrus is a Louisville native. In her spare time, she enjoys traveling and has visited 44 U.S. states and numerous countries outside North America. Dr. Burrus also likes cooking, art and philanthropic endeavors.   Want more inspiring stories and real-life resources? Subscribe and share "Stronger After Stroke" with someone who needs a little extra support navigating life after stroke. For more support after stroke, check out the programs available online and in person through  Norton Neuroscience Institute Resource Centers: https://nortonhealthcare.com/services-and-conditions/neurosciences/patient-resources/resource-center/ If you enjoyed this podcast, listen to Norton Healthcare's "MedChat" podcast, available in your favorite podcast app. "MedChat" provides continuing medical education on the go and is targeted toward physicians and clinicians. Norton Healthcare, a not-for-profit health care system, is a leader in serving adult and pediatric patients throughout Greater Louisville, Southern Indiana, the commonwealth of Kentucky and beyond. A strong research program provides access to clinical trials in a multitude of areas. More information about Norton Healthcare is available at NortonHealthcare.com.   Date of original release: Nov. 10, 2025

Carolyn J. Routh's story shows how strength, hope, and love can guide you through fear and toward recovery after stroke. The post Carolyn J. Routh Stroke Recovery Journey: Overcoming Fear After Stroke appeared first on Recovery After Stroke.

In this episode of the Brain and Life podcast, co-host Dr. Katy Peters is joined by Dr. Laurel Cherian, an associate professor in the Department of Neurological Sciences at Rush University Medical Center and Assistant Dean of Advising, Medical Student Affairs for Rush Medical College to discuss stroke awareness, prevention, and treatment for World Stroke Day. They answer listener-submitted questions about stroke risk factors, symptoms, and recovery strategies, emphasizing the importance of recognizing stroke signs and maintaining a healthy lifestyle   Additional Resources Get Smart about Stroke Navigating the Complexities of Stroke Stroke: Symptoms, Risk Factors, and Treatments   Other Brain & Life Podcast Episodes on These Topics Matt and Kanlaya Cauli on Rebuilding Life After Stroke Timothy Omundson on Stroke Recovery and His Return to Television Peloton Instructor Bradley Rose on Returning to Life After Stroke We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media:   Guests: Dr. Laurel Cherian @rushmedical Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

At just 25 years old, Maria Garcia's life changed in an instant. A massive stroke left her paralyzed and unable to speak. Doctors offered little hope, but Maria refused to settle for a lifetime of limitation.Ten years of fighting led to a breakthrough that defied logic and proved that the body longs to heal when given the right support. Today, she guides others from surviving to thriving through her nutrition program and faith-anchored wisdom.You'll discover how Maria moved from being locked in her body to living vibrantly again, and why your own turnaround may begin with one simple decision to nourish your body and believe again. Highlights• Why food is more than fuel,  it's foundation• How faith and mindset accelerate physical healing• Real-life stories of people reversing illness and reclaiming energy• The truth about hydration, cravings, and food psychology

On this episode of "The Valley Today," host Janet Michael welcomed listeners to a heartfelt and informative discussion about brain injury support in the Shenandoah Valley. Joined by Gina Hilliard, President of the Luray Page Chamber of Commerce, and special guests Sarah Outler and Lisa Bell from Brain Injury Connections of the Shenandoah Valley, the conversation shed light on the challenges faced by survivors and the vital resources available to them. Understanding Brain Injury: More Than Meets the Eye From the outset, the guests emphasized that brain injuries come in many forms. Lisa Bell, Northern Region Case Manager, explained the distinction between traumatic brain injuries—often caused by external events like car accidents or sports injuries—and acquired brain injuries, which can result from strokes, aneurysms, or medical incidents. Importantly, the organization supports individuals with both types, except for those born with brain injuries. Sara Outler, Outreach and Advancement Manager, highlighted the organization's client-centered approach. "Every brain injury is unique," she noted, underscoring the importance of tailoring support to each individual's goals and needs. All services are provided free of charge, thanks to grants and community funding, ensuring accessibility for everyone in need. Case Management: Guiding the Path to Recovery Transitioning from definitions to real-life impact, the conversation delved into the role of case managers. Lisa described how she connects clients with community resources, assists with practical needs like housing or volunteering, and supports both survivors and their caregivers. Rather than doing everything for clients, she empowers them to take steps toward their own goals, fostering independence and confidence. Janet observed that such support is invaluable, especially for families who may feel lost after a loved one's injury. Lisa agreed, noting the scarcity of resources in rural areas and the importance of extending help to caregivers, who often face their own set of challenges. Programs That Make a Difference The discussion then turned to innovative programs offered by Brain Injury Connections. Sara introduced "Mind Matters," a new initiative focused on concussion awareness and recovery, particularly for youth athletes. She stressed the need for proper protocols and education for coaches, parents, and teachers, pointing out that children require longer recovery times than adults after a concussion. Additionally, the PALS program pairs survivors with volunteers for monthly social outings, combating the isolation that often follows a brain injury. Whether it's a coffee date or a shared hobby over Zoom, these connections help rebuild confidence and provide much-needed companionship. Building Awareness and Community Connections Throughout the episode, the guests emphasized the importance of spreading awareness. Many people who could benefit from services simply don't know they exist. Sara encouraged listeners to visit the organization's website (bicsv.org), where they can find resources, contact information, and details about support groups—both virtual and in-person. Lisa added that friends and family members unsure how to support a loved one with a brain injury are welcome to reach out for advice. The organization is committed to helping not just survivors, but their entire support network. Looking Ahead: Events and Engagement As the conversation wrapped up, Gina shared upcoming community events, including a business seminar on holiday marketing and a women's paint-and-sip evening. These gatherings, she noted, are opportunities to connect, learn, and support one another as the holiday season approaches.

In this Huberman Lab Essentials episode, my guest is Dr. David Berson, PhD, a professor of neuroscience at Brown University and an expert on the visual system and circadian biology. We explore how the brain processes visual information, from photons entering the eye to conscious perception in the cortex. We discuss color vision, the discovery of melanopsin and intrinsically photosensitive retinal ganglion cells, and how light regulates our circadian clock and melatonin release. We also examine the vestibular system's role in balance and motion detection, the cerebellum's function in motor coordination, and the midbrain's integration of multiple sensory inputs. Finally, we discuss the basal ganglia's role in decision-making and an extraordinary case of neuroplasticity in visual cortex. Read the episode show notes at hubermanlab.com. More Huberman Lab Essentials: https://hubermanlab.com/essentials Thank you to our sponsors AGZ: https://drinkagz.com/huberman Function: https://functionhealth.com/huberman LMNT: https://drinklmnt.com/huberman Timestamps (00:00:00) Dr. David Berson (00:00:30) Visual Perception, Photons & Retinal Processing, Ganglion Cells (00:02:12) Color Vision, Wavelengths & Photoreceptors; Cones & Rods (00:05:56) Sponsor: AGZ by AG1 (00:07:24) Melanopsin, Intrinsically Photosensitive Retinal Ganglion Cells & Brightness Detection (00:08:31) Circadian Clock & Synchronization, Suprachiasmatic Nucleus (SCN); Master Clock Function (00:11:16) Hypothalamus, Autonomic Nervous System & Hormonal Systems (00:13:01) Tool: Light Exposure & Melatonin Regulation, Pineal Function (00:14:35) Vestibular System, Balance & Motion Detection; Semicircular Canals (00:16:44) Vestibulo-Ocular Reflex, Image Stabilization & Head Rotation (00:18:51) Sponsor: Function (00:20:45) Motion Sickness, Visual-Vestibular Conflict; Tool: Avoiding Nausea (00:22:24) Cerebellum, Motor Coordination & Learning (00:23:17) Cerebellar Function, Precision & Timing of Movement; Cerebellar Ataxia (00:24:54) Flocculus & Visual-Vestibular Integration (00:25:56) Midbrain, Brainstem & Reflexive Behavior; Superior Colliculus (00:28:26) Spatial Orientation & Multisensory Integration; Rattlesnake Heat Detection (00:30:13) Sensory Integration & Corroboration (00:31:13) Sponsor: LMNT (00:32:45) Basal Ganglia, Go vs No-Go Behavior & Decision Making (00:33:56) Tool: Impulse Control & Delayed Gratification, Marshmallow Test (00:34:51) Individual Differences, Genetics & Experience (00:35:37) Visual Cortex, Neural Processing & Brain Plasticity (00:36:26) Cortical Reorganization, Braille Reading & Stroke Recovery (00:39:15) David Berson's Work; Acknowledgements Disclaimer & Disclosures Learn more about your ad choices. Visit megaphone.fm/adchoices

On New York University Week: Listening to music can have many benefits. Pablo Ripollés, assistant professor of music technology and psychology, investigates why it may be helpful for those recovering from a stroke. Pablo Ripollés is an Assistant Professor with a joint position between the Department of Psychology and the Music and Audio Research Laboratory […]

Eastenders actress, singer and author Cheryl Fergison Johnny Seifert on Secure The Insecure Podcast this week.Cheryl reflects on her son's ADHD diagnosis and the emotional toll that left her feeling “like a human punchbag.” She looks back on her iconic role as Heather Trott in EastEnders. Plus, Cheryl shares her thoughts on Monjaro and gives us a health update after her recent stroke.Cheryl Fergison, Behind The Scenes is out to buy nowSecure The Insecure is the celebrity mental health podcast that airs on Mondays available to watch on Youtube or listen to on Apple Podcasts and Spotify. Make sure you subscribe/rate/review where you are watching or listening to Secure The Insecure.Follow Johnny Seifert on Social Media:Instagram: www.instagram.com/johnnyseifertInstagram: www.instagram.com/securetheinsecurepodcastTikTok www.tiktok.com/johnnyseifert92 Hosted on Acast. See acast.com/privacy for more information.

Welcome to the Psychedelic Conversations Podcast!In this episode, Dr. Steven Zeiler, a physician at Johns Hopkins University, shares his groundbreaking research exploring how psychedelics might aid stroke recovery. We discuss the global impact of stroke, the limitations of current therapies, and the brain's natural “early repair mechanisms.” Dr. Zeiler explains how psychedelics may reopen critical periods of neuroplasticity, offering hope for patients even years after a stroke. Together, we explore the potential of combining psychedelic-assisted therapy with intensive rehabilitation, not only for stroke but possibly other brain injuries. This conversation highlights the future of neuroscience, the importance of set and setting, and the promise of new approaches that could change countless lives.About Steven:Dr. Steven Zeiler focuses on the diagnosis and management of cerebrovascular disease (stroke), including acute stroke therapy, secondary prevention of stroke, and recovery from stroke. Dr. Steven Zeiler received his medical and doctor of philosophy degrees from the University of Colorado. He completed a one year internal medicine internship at the University of Colorado prior to coming to Johns Hopkins for his residency training in Neurology. Following his residency, Dr. Zeiler then completed a one year fellowship in Vascular Neurology also at Johns Hopkins.Connect with Steven:https://profiles.hopkinsmedicine.org/provider/steven-zeiler/2703002Thank you so much for joining us! Psychedelic Conversations Podcast is designed to educate, inform, and expand awareness.For more information, please head over to https://www.psychedelicconversations.comPlease share with your friends or leave a review so that we can reach more people and feel free to join us in our private Facebook group to keep the conversation going. https://www.facebook.com/groups/psychedelicconversationsThis show is for information purposes only, and is not intended to provide mental health or medical advice.About Susan Guner:Susan Guner is a holistic psychotherapist with a mindfulness-based approach grounded in Transpersonal Psychology, focusing on trauma-informed, community-centric processes that offer a broader understanding of human potential and well-being.Connect with Susan:Website: https://www.psychedelicconversations.com/Facebook: http://www.facebook.com/susan.gunerLinkedIn: https://www.linkedin.com/in/susan-guner/Instagram: http://www.instagram.com/susangunerTwitter: http://www.twitter.com/susangunerBlog: https://susanguner.medium.com/Podcast: https://anchor.fm/susan-guner#PsychedelicConversations #SusanGuner #StevenZeiler #PsychedelicPodcast #Microdosing #PsychedelicScience #PlantMedicines #PsychedelicResearch #Entheogens

They told him “no hope.” Wesley Ray turned that into fuel, proving stroke recovery is possible with relentless goals and grit. The post Etanercept Stroke Recovery: Wesley Ray's Relentless Comeback appeared first on Recovery After Stroke.

Chime In, Send Us a Text Message!In this episode, Dr. Jennifaye V. Brown shares her journey into neuro-physical therapy, emphasizing the importance of personalized care and the role of movement in recovery. She discusses her specialization in AFOs (ankle-foot orthoses) and how they can be tailored to individual needs. Dr. Brown highlights the significance of empowering patients through education and the benefits of aquatic therapy for stroke survivors. She also addresses the balance between using AFOs and maintaining muscle recovery, and shares her vision for future innovations in therapy, including the development of an app to enhance patient engagement and education.TakeawaysDr. Brown's journey into neuro-PT was inspired by her family background.Walking is a fundamental and accessible form of exercise.AFOs should be customized to fit individual needs and lifestyles.Patient empowerment is crucial in the recovery process.Aquatic therapy offers unique benefits for stroke survivors.Communication between therapists and patients is essential for effective care.Therapists should focus on teaching patients how to maintain their health long-term.Regular assessments and adjustments to AFOs are necessary as patients progress.Dr. Brown emphasizes the importance of movement science in therapy.Future innovations in therapy could include technology to enhance patient education.Author: Brace Yourself: Everything You Need to Know About AFOs After StrokeOrder Book From: AmazonOrder ebook (Flipbook or PDF): jvbneuropt.com/bookWebsite: jvbneuropt.comBusiness: jvb physical therapy services, llc.Cell: 843.364.5089Email: info@jvbneuropt.comLinkedIn: Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! Support the showShow credits:Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook | SubstackKnow Stroke Podcast Disclaimer: Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment. Get Our Podcast News Updates on Substack

Episode 34.  The Overlooked Key to Stroke Recovery: Hearing Hearing is one of the keys to independence after a stroke. More than just sound, hearing is critical for brain health, rehabilitation and independence following a stroke. In this episode of “Stronger After Stroke,” host Rosa Hart, BSN, R.N., SCRN, talks with Virginia Dekanski, Au.D., CCC-A, about how untreated hearing changes can impact recovery and  long-term cognitive health. In this episode, you will learn: Why hearing loss can slow rehabilitation  after a stroke. How balance problems are connected to hearing and the inner ear. The link between untreated hearing loss and increased dementia risk. What vestibular testing reveals about hidden dizziness or the risk of falling. How hearing support can protect cognition and improve quality of life. About our guest: Viriginia Dekanski earned her audiology doctorate from Syracuse University and her bachelor of arts degree. in cognitive psychology from the University of Virginia. Licensed in Kentucky, she holds a Certificate of Clinical Competency in Audiology  from the American Speech-Language-Hearing Association. She specializes in vestibular testing and adult diagnostics.   Want more inspiring stories and real-life resources? Subscribe and share “Stronger After Stroke” with someone who needs a little extra support navigating life after stroke. For more support after stroke, check out the programs available online and in person through  Norton Neuroscience Institute Resource Centers: https://nortonhealthcare.com/services-and-conditions/neurosciences/patient-resources/resource-center/ If you enjoyed this podcast, listen to Norton Healthcare's “MedChat” podcast, available in your favorite podcast app. “MedChat” provides continuing medical education on the go and is targeted toward physicians and clinicians. Norton Healthcare, a not-for-profit health care system, is a leader in serving adult and pediatric patients throughout Greater Louisville, Southern Indiana, the commonwealth of Kentucky and beyond. A strong research program provides access to clinical trials in a multitude of areas. More information about Norton Healthcare is available at NortonHealthcare.com.   Date of original release: Sept. 8, 2025

Chime In, Send Us a Text Message!Episode 85: Empowering Stroke Recovery Through Data and Technology Enabled Solutions with Rory PoleraRory first joined us on the Know Stroke Podcast (March 2024 Episode 69). A lot of highs and lows have passed in Rory's recovery since that episode aired and we wanted to share his lessons learned ‘After the Pod'.  David will also be taking a deeper dive into Rory's story in his upcoming new book Closure After Stroke.In this conversation, stroke survivors David Dansereau and Rory Polera discuss the journey of stroke recovery, emphasizing the importance of personal experiences, data-driven insights, and the role of technology in rehabilitation.  Tip: Watch this full episode on our YouTube Channel  for slide deck.Rory shares his personal timeline, the challenges he faced, and the tools he used to navigate his recovery. They explore the rising rates of strokes in young adults, the significance of mental health, nutrition, and community support in recovery, and the potential for technology-enabled solutions to enhance stroke rehabilitation outcomes and long term surveillance for secondary prevention. The discussion highlights the need for greater awareness and accessibility of tech enabled recovery tools for stroke survivors.TakeawaysYou don't have to be an engineer or physical therapist to recover from a stroke.Conducting an ethnography of oneself can aid recovery.Young stroke occurrence rates are rising alarmingly and we need to explore new recovery pathways that resonate with their unique needs.Recovery doesn't stop at discharge; it's a continuous journey.Mental health is critical at every phase of recovery.Data can provide valuable insights into recovery progress.Community support plays a vital role in recovery.The future of stroke recovery lies in integrating technology and personal experiences with a supportive stroke community.Support Our Show! Thank you for helping us to continue to make great content. We appreciate your generosity! Support the showShow credits:Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook | SubstackKnow Stroke Podcast Disclaimer: Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment. Get Our Podcast News Updates on Substack

A stroke doesn't just happen—it's often the result of underlying imbalances that have gone unaddressed for too long. But here's the hopeful truth: both stroke prevention and recovery are possible with the right support. In this episode, Dr. Holly Carling and Alicia explore how to protect and heal the brain by looking at the root causes that contribute to strokes in the first place—like high blood pressure, inflammation, and toxicity. They also discuss how natural approaches, including acupuncture, can be used to treat stroke symptoms and support long-term recovery. Whether you're looking to reduce your risk or help a loved one heal, this episode offers valuable insight into what's possible when we support the body's innate ability to restore itself. In this episode: Common causes of stroke—and how to address them naturally How acupuncture can help treat stroke symptoms and support healing The connection between toxicity, circulation, and brain health Why medication isn't always enough for prevention or recovery Tips for reducing stroke risk through nutrition, hydration, and detoxification What to look for in post-stroke care (and how to advocate for more holistic options) Hopeful stories of healing and progress through natural approaches   For full show notes, resources and links head to: https://vitalhealthcda.com/podcasts/   The Vital Health for You Podcast is for everyone. Get to know us more by connecting with us at our website or on our Facebook page.   *Disclaimer: The statements made in this episode about specific products have not been evaluated by the U.S. Food & Drug Administration and are not intended to diagnose, treat, cure or prevent disease. All information provided is for informational purposes only and is not intended as a substitute for advice from your physician or other healthcare professional. 

What if everything you thought you knew about balance and mobility was flat-out wrong?Dan Metcalfe was a Broadway performer at the top of his game when he suddenly became paralyzed mid-performance. What followed—partial brain death, a long recovery, and a total reinvention—sounds impossible, until you hear him tell it.Dan didn't just survive. He discovered something that changed everything: balance isn't just about strong muscles—it's about rewiring the brain. And the conventional ways we train for stability and fall prevention? They're missing the mark.In this eye-opening episode, Dan shares how his recovery led to a revolutionary brain-first approach to movement and mobility that's helped over 70,000 people—from stroke survivors to seniors battling Parkinson's—regain confidence, coordination, and independence. Dan's story is powerful proof that it's never too late to rebuild strength, restore balance, and reclaim vitality. His work challenges everything we've been taught about aging and shows us what's truly possible. In this conversation, he breaks down his seven pillars of natural health—simple, transformative principles you'll want to live by. Want to learn more? Visit totalbalancecompany.com to explore Dan's Total Balance program and Born Superhuman framework. Or reach out through the show notes to connect directly.Follow Dan Metcalfe at https://www.instagram.com/bornsuperhuman/Dan's book, Born Superhuman, is available at booksellers._________________________________________Are you ready to reclaim your midlife body and health? I went through my own personal journey through menopause, the struggle with midsection weight gain, and feeling run-down. Faster Way, a transformative six-week group program, set me on the path to sustainable change. https://www.fasterwaycoach.com/?aid=MicheleFolanHave questions about Faster Way? Please email me at:mfolanfasterway@gmail.com Sign up for Michele's weekly newsletter for more health and fitness tips and insights. https://michelefolanfasterway.myflodesk.com/i6i44jw4fq RIMAN skincare finally gave me real, visible results—restoring my glow, firmness, and confidence in my skin at 61. RIMAN Korea's #1 Skincare Line - https://michelefolan.riman.com*Transcripts are done with AI and may not be perfectly accurate.**This podcast is for general informational purposes only and does not constitute the practice of medicine, nursing, or other professional healthcare services, including the giving of medical advice. The content of this podcast is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Users should not disregard or delay in obtaining medical advice for any medical condition they may have and should seek the assistance of their healthcare professionals for any such conditions.

Both high-intensity and standard physiotherapy protocols play vital roles in stroke recovery. Choosing the right approach depends on the individual's condition, tolerance, and goals—making professional guidance essential to achieving long-term success. Visit https://lifetimehealthpt.com/ for details. Lifetime Health Physiotherapy City: Durham Address: Durham, CT Website: https://lifetimehealthpt.com/

In this Mission Matters episode, host ⁠Adam Torres⁠ speaks with ⁠Rachel Onile⁠, Founder of ReMIND, a stroke recovery app designed to support marginalized communities. Born from her mother's experience with stroke and the inaccessibility of ongoing care, ReMIND combines speech therapy tools, emotional health tracking, and peer support in one affordable platform. Rachel shares her journey from pitch competitions to purposeful impact in health tech. Follow Adam on Instagram at ⁠https://www.instagram.com/askadamtorres/⁠ for up to date information on book releases and tour schedule. Apply to be a guest on our podcast: ⁠https://missionmatters.lpages.co/podcastguest/⁠ Visit our website: ⁠https://missionmatters.com/⁠ More FREE content from Mission Matters here: ⁠https://linktr.ee/missionmattersmedia⁠ Learn more about your ad choices. Visit podcastchoices.com/adchoices

Chanell's stroke at 35 stole her words, but gave her a new voice. Her story is a roadmap for any survivor seeking strength, purpose, and healing. The post From Coma to Clarity: A Young Woman's Stroke, Recovery, and Redefining Herself appeared first on Recovery After Stroke.

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, "Differentiating Dravet and Lennox-Gastaut: Diagnosis, Research, and What's Ahead," In this episode, Joyce Lee-Iannotti, MD, PhD, division chief of both the Stroke Center and the Comprehensive Sleep Center at Barrow Neurological Institute, discusses her presentation from the 2025 SLEEP Annual Meeting focused on the glymphatic system's role in stroke. She outlines the science behind this brain-cleansing pathway, its dependence on sleep quality, and how its dysfunction may worsen outcomes in both ischemic and hemorrhagic stroke. Lee-Iannotti also details practical, evidence-backed strategies for optimizing glymphatic clearance—from sleep posture and sleep apnea treatment to emerging pharmacologic options like orexin antagonists. In addition, she highlights major gaps in clinician awareness and offers calls to action for improving sleep assessments in stroke care. Looking for more Sleep disorders discussion? Check out the NeurologyLive® Sleep disorders clinical focus page. Episode Breakdown: 1:00 – Overview of the glymphatic system and its relevance in stroke care 2:55 – Evidence linking sleep quality and glymphatic activity in stroke prevention and recovery 7:40 – Neurology News Minute 10:05 – Potential interventions: pharmacologic and nonpharmacologic approaches to enhance glymphatic function 13:10 – Raising clinical awareness of sleep's role in stroke and neurologic disease management The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: FDA Grants Priority Review, Sets PDUFA Date for Hunter Syndrome Treatment Tividenofusp Alfa FDA Approves Updated Label for Alzheimer Therapy Donanemab to Lower ARIA-E Risk Exablate Neuro Gains FDA Approval for Staged Bilateral Focused Ultrasound in Advanced Parkinson Disease Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

Chime In, Send Us a Text Message!In this special follow-up episode of the Know Stroke Podcast, we welcome back Dr. Teresa Kimberley to dive into the one-year outcome study of Vivistim — the first FDA-approved vagus nerve stimulation (VNS) therapy for chronic stroke rehabilitation.Dr. Kimberley, a leading researcher in neuroplasticity and motor recovery, shares key insights from the study, exploring how Vivistim supports long-term functional gains in stroke survivors. We discuss what the findings mean for brain plasticity, how VNS stacks up against other rehabilitation options, and what's next in the field of neurorehabilitation.Whether you're a clinician, stroke survivor, caregiver, or simply curious about cutting-edge stroke recovery science, this conversation offers valuable takeaways on the future of VNS therapy.

 Imagine regaining movement after years of immobility. Julie Graham, OT and therapy development specialist at MicroTransponder, discusses her extensive 20-year career in occupational therapy and her work with Vivistim, a device designed for chronic ischemic stroke survivors. Vivistim pairs vagus nerve stimulation with physical and occupational therapy to enhance neuroplasticity and regain motor functions in the affected upper extremity. Julie explains the role of the vagus nerve in rewiring the brain's connections and how Vivistim is different from e-stim (external electrical stimulation). While the FDA has only approved Vivistim for chronic ischemic survivors, there are multiple studies for all types of brain injury, so Julie hopes access will be expanded soon. She also shares real-life success stories of stroke survivors who have regained significant abilities. Support the showNew episodes drop every other Thursday everywhere you listen to podcasts.

Show Notes:Note: Part 2 of Ian McGann's story continues next week in Episode 450. Stay tuned for the next chapter in his remarkable recovery.00:37 — Introduction by Ian Jessop: Stroke statistics and introducing guest Ian McGann01:37 — Ian's early disclaimer: stroke recovery affects speech, memory, and pacing03:30 — The moment the stroke hit: locked-in syndrome, stigma, and emergency response failures05:36 — A privileged man denied life-saving care due to cannabis use06:53 — Out-of-body awareness and bodily breakdown during the stroke09:34 — Ian's past cannabis use and the EMTs' biased assumptions11:29 — Ian's background as a certified first responder and the irony of his treatment12:28 — Arrival at the hospital and continued medical neglect14:30 — Denial of stroke protocol and degrading treatment by hospital staff18:33 — Wife Caitlin intervenes and demands proper stroke care20:31 — Misread CT scan, delayed diagnosis, and poor communication21:56 — Finally, emergency airlift to a better-equipped hospital23:45 — A shift in care: competent, compassionate treatment begins26:22 — 100% blockage found during emergency procedure28:03 — Waking up: a spiritual awakening begins in the ICU30:30 — Ego death and four months of profound spiritual awareness31:58 — Ian's experience of high vibration and soul connection36:08 — Learning to walk, speak, and function again37:16 — Gift of gab aids in speech recovery38:02 — Ian continues to use cannabis and reflects on its role in his healing39:10 — Discussing the science of cannabinoids and brainstem stroke resilience39:49 — Anecdote about massive cannabis dosing and its surprising outcome40:30 — Ian reflects on his journey and expresses gratitude for survival Visit our website: CannabisHealthRadio.comDiscover products and get expert advice from Swan ApothecaryFollow us on Facebook.Follow us on Instagram.Find us on Rumble.Keep your privacy! Buy NixT420 Odor Remover

Dr. Lisa Murphy, CEO of the Stroke Foundation, discusses stroke recovery, advocacy, and the support services stroke survivors need now more than ever. The post Dr. Lisa Murphy on Stroke Recovery, Advocacy, and a New Vision for Survivors appeared first on Recovery After Stroke.

More management and insurance knowledge in my newsletter: https://www.odysseymgmt.com/newsletter   A stroke stole his manual skills—could it end his career? In this episode, Dr. Gregory Wu opens up about the life-altering moment a stroke derailed his clinical career and how it made him a better businessman and leader. At the peak of his practice, Greg faced a sudden medical crisis that left him unable to perform dentistry—a devastating blow to any clinician. He shares what it felt like to lose not just motor function, but his professional identity. They dive into the emotional impact, the grieving process, and the harsh reality of what happens when your livelihood is tied to your hands. Greg also discusses the lessons he learned about disability insurance, financial planning, and how ego can complicate the recovery process. If you've ever wondered what would happen if you couldn't practice tomorrow, this conversation is your wake-up call. Dr. Wu's story is one of resilience and redefining purpose when the career you love is forever altered overnight.   Connect with Dr. Gregory Wu   Instagram:  the_way_of_the_wu LinkedIn: Gregory Wu Email: greg.wu at emerson-dental.com    Online Summit: Built to Last: How to Scale, Sell, and Leave a Legacy  May 30th from 8:00am to 4:00pm CST ------------- *Is your AR out of control? Is your admin team burning out?

What happens after a stroke? In this enlightening discussion, Dr. Dallapiazza outlines what stroke survivors can anticipate during their recovery journey and the various therapies available to aid in regaining independence and function.

Chris Hughen sat down with Stacie Barber to discuss her journey through her husband's stroke recovery. Stacie shares the difficulties throughout Logan's rehab, the value of different healthcare professionals, the intensity of neuro rehab, balancing family demands while continuing to manage her own business, and much more. Watch the full episode: https://youtu.be/6QpNDT1OYKM  Episode Resources: Stacie's Instagram Stacie's Website Logan's GoFundMe --- Follow Us: YouTube: https://www.youtube.com/e3rehab  Instagram: https://www.instagram.com/e3rehab/ Twitter: https://twitter.com/E3Rehab --- Rehab & Performance Programs: https://store.e3rehab.com/  Newsletter: https://e3rehab.ck.page/19eae53ac1  Coaching & Consultations: https://e3rehab.com/coaching/  Mentoring: https://e3rehab.com/mentorship-intake-form/  Articles: https://e3rehab.com/articles/  --- Podcast Sponsors: The Science PT: Get 5% off all online courses using “E3podcast” at checkout! - https://thesciencept.com/courses/online-courses/ Legion Athletics: Get 20% off using "E3REHAB" at checkout! - https://legionathletics.rfrl.co/wdp5g  Vivo Barefoot: Get 15% off all shoes! - https://www.vivobarefoot.com/e3rehab --- @dr.surdykapt @tony.comella @dr.nicolept @chrishughen @nateh_24 --- This episode was produced by Kody Hughes

A stroke survivor's raw and inspiring story of healing, resilience, and discovering purpose after three brain bleeds and brain surgery. The post This Stroke Recovery Journey Might Change How You See Everything appeared first on Recovery After Stroke.

(2:30) - Regaining mobility quickly after a strokeThis episode was brought to you by Mouser, our favorite place to get electronics parts for any project, whether it be a hobby at home or a prototype for work. Click HERE to learn more about how wearable robotics is aiding Parkisons therapy! Become a founding reader of our newsletter: http://read.thenextbyte.com/ As always, you can find these and other interesting & impactful engineering articles on Wevolver.com.

Diabetic Stroke: Tyrone Brown's Journey of Resilience and Recovery A Stroke Survivor's Wake-Up Call At 47, Tyrone Brown was living life at full speed—running businesses, serving his community, and enjoying time with his family. But one day, while out with his wife, something strange happened. He dropped a bag. Then, he dropped it again. What […] The post From Stroke to Strength: Tyrone Brown's Diabetic Stroke Recovery Journey appeared first on Recovery After Stroke.

Have you been told your stroke recovery has plateaued? Dr. Matthew J. Ashley explains why that's a myth and how you can keep progressing. The post Why “You've Hit a Plateau” in Stroke Recovery Is a Myth – And How to Keep Improving! appeared first on Recovery After Stroke.

Ohio leads the nation in the percentage of stroke cases, according to the CDC.

What's up, folks? It's your boy Brad Lea back again with another episode of Dropping Bombs! Today, I've got a powerhouse in the studio, and you're going to want to pay attention—Travis Hearn is in the house! If you don't know this guy yet, trust me, you're about to. He's the pastor at Impact Church in Scottsdale, Arizona—a megachurch pulling in 10,000 every Sunday that started as bible study for the Arizona Cardinals and evolved into a 10,000-member church! That's an impressive number! We also get into some heavy topics, such as Travis' health scare, questioning one's faith, understanding miracles, and how to stay grounded through life's roughest storms. I also reveal to Travis and viewers my own miracle in this episode. This episode has some big takeaways that I know you are not going to want to miss! What You'll Learn: The episode conveys that hope is a powerful tool for overcoming adversity, whether it's health-related, emotional, or spiritual.   Highlights: Travis Hearn's Church Journey Miraculous Stroke Recovery Faith in Action The Significance of Worship Facing Life's Fires Generational Blessings Book Release Miracles and Personal Testimonies Resources Mentioned:  Find Travis' Books Here: https://www.amazon.com/stores/Travis-Hearn/author/B00O3SGGB2?ref=ap_rdr&isDramIntegrated=true&shoppingPortalEnabled=true    You can follow today's guest at: https://www.instagram.com/travishearn/?hl=en  https://www.youtube.com/c/OfficialTravisHearn