Podcasts about johns hopkins berman institute

This week, my guest is Associate Research Professor and Director of Education Initiatives at the Johns Hopkins Berman Institute of Bioethics and author of Toward a Small Family Ethic and Catastrophe Ethics, Dr Travis Rieder.We explore the complex moral questions surrounding procreation, family sizes and climate change. We discuss:- Global temperature projections and what they mean for children born today- The ethics of family size in a world facing climate crisis- The impact of the environment on children being born now –and in turn, their impact on the world. - The concept of carbon legacy - Where responsibility lies when it comes to overpopulation - Perspectives on childfree living! Travis challenges traditional narratives around procreation and offers thought-provoking insights into how we can align our personal choices with the urgent need for climate action and talks of his own decision to have a small family. Enjoy! xx Links to Dr Travis Rieder;https://www.travisrieder.com/Catastrophe Ethics - https://www.amazon.co.uk/Catastrophe-Ethics-Good-World-Gone/dp/0715655329/ref=sr_1_1?crid=JLGLHC5DS5YT&dib=eyJ2IjoiMSJ9.7hjV1VbOd0zwIUjxzTDz8RIh56ZOTdo-3TWDW2DtPwDGjHj071QN20LucGBJIEps.O9ALQFhYP1-fCkJYt9FTQoiRS4R2TAnmh8EZN8DaYh4&dib_tag=se&keywords=catastrophe+ethics&qid=1742938639&sprefix=catastrophe+ethics%2Caps%2C73&sr=8-1 Thank you so much for listening to my show!You can follow and contact me here;Instagram - https://www.instagram.com/onesinglewoman/Facebook - https://www.facebook.com/profile.php?id=61551831488278TikTok - https://www.tiktok.com/@onesinglewomanYouTube - https://www.youtube.com/@onesinglewomanpodcastemail - onesinglewomanpodcast@gmail.com

How can we address global problems – such as catastrophic climate change – when individual actions make very little difference? What's the right thing to do when there aren't easy answers? Is it wrong to do nothing? Is everything relative, or are there better ways to think about solutions?As Travis Rieder writes in Catastrophe Ethics, we need our own frameworks for making decisions. Two common pitfalls can get in the way. One highlights universal rules and the other is averse to them. To avoid being distracted by either, we need to think for ourselves about right and wrong, inspired by ideas drawn from moral philosophy.Our conversation explores how this works to make life meaningful. In the process, we talk about illusions of purity, the need to find reasons to justify actions and the value of “doing our part” – however limited it may be – to minimise harm. We also reflect on life's inevitable compromises, the complicated ethics of creating new people, and why personal integrity means being transparent not wearing a hair-shirt.Travis works as a professor at the Johns Hopkins Berman Institute of Bioethics. He's also the author of In Pain: A Bioethicist's Personal Struggle with Opioids, which expands on a TED talk about his experience.

Tom talks about a controversial practice being employed to harvest organs for transplant from people who have died called Normothermic Regional Perfusion, or NRP. According to reporting by NPR's Rob Stein, this technique is considered an innovation which produces high quality and less damaged organs for those in need. This innovation is not, however, without ethical concerns. Dr. Jeffrey Kahn is the Director of the Johns Hopkins Berman Institute of Bioethics. The Institute produces a podcast, playing god? and he joins Midday to help us understand NRPs.Email us at midday@wypr.org, tweet us: @MiddayWYPR, or call us at 410-662-8780.

Travis Rieder, PhD, is a faculty member at the Johns Hopkins Berman Institute of Bioethics, where he directs the Master of Bioethics degree program. He holds secondary appointments in the departments of Philosophy and Health Policy and Management, as well as the Center for Public Health Advocacy. His first book, a memoir of opioid dependence and withdrawal, was named an NPR Best Book of 2019, and his TED Talk on the same topic has been viewed more than 2.5 million times. He has been interviewed by Terry Gross on Fresh Air and his opinion writing has appeared in The New York Times, USA Today, and Psychology Today. www.travisrieder.com

On a planet with 8 billion people, what's the argument for an individual doing the right thing if it's barely a drop in the bucket? Travis Rieder, faculty member at the Johns Hopkins Berman Institute of Bioethics, where he directs the Master of Bioethics degree program. He holds secondary appointments in the departments of Philosophy and Health Policy and Management, as well as the Center for Public Health Advocacy and he joins host Krys Boyd to discuss our everyday challenges and the moral quandaries they put us in, and how to do the decent thing in a global and complex world. His book is “Catastrophe Ethics: How to Choose Well in a World of Tough Choices.”

The climate crisis presents us with a number of moral challenges. We all produce emissions, but there are massive differences and inequities in how much pollution each individual is responsible for and who is harmed the most by the consequences. As the very real impacts of the crisis only become more obvious and deadly, we continue to ask ourselves: what is our responsibility?  In this week's show, we dig into some of the tough ethical considerations for living in a climate crisis. To do so, we talk to Travis Rieder, an associate research professor at the Johns Hopkins Berman Institute of Bioethics. Rieder is the author of multiple books including In Pain: A Bioethicist's Personal Struggle with Opioids. His latest book is Catastrophe Ethics: How to Choose Well in a World of Tough Choices. We discuss the conversations around individual responsibility vs. collective action, how to determine our best path for fighting climate change, and what it means to exist between purity and nihilism.  Read Catastrophe Ethics: How to Choose Well in a World of Tough Choices As always, follow us @climatepod on Twitter and email us at theclimatepod@gmail.com. Our music is "Gotta Get Up" by The Passion Hifi, check out his music at thepassionhifi.com. Rate, review and subscribe to this podcast on iTunes, Spotify, Stitcher, and more! Subscribe to our YouTube channel! Join our Facebook group.    

One of the more annoying characteristics of our coastal elites is their incessant virtue signaling. Every life choice - from drinking from plastic water bottles to driving electric cars to deciding to have children - is presented in terms of what Travis Rieder, the Johns Hopkins bio-ethicist and author of CATASTROPHE ETHICS, calls the “purity ethic”. Everybody these days seems greedy for virtue. But this greed, Rieder argues, isn't realistic in an age of increasingly moral complexity. So, in our KEEN ON conversation, Reider lays out a path for leading a (reasonably) decent life which navigates between ethical fundamentalism and nihilism. Travis Rieder, PhD, is an associate research professor at the Johns Hopkins Berman Institute of Bioethics, where he directs the Master of Bioethics degree program. He holds secondary appointments in the departments of Philosophy and Health Policy and Management. His first book, IN PAIN (HarperCollins), was named an NPR Best Book of 2019, and his TED Talk on the same topic has been viewed more than 2.5 million times. His second book, CATASTROPHE ETHICS (Dutton), will be published on March 5, 2024. Travis has been interviewed by Terry Gross on Fresh Air and his opinion writing has appeared in The New York Times, USA Today, The Wall Street Journal, and Psychology Today. He lives in Columbia, MD with his partner, daughter, and their very small dog, Yumosh.Named as one of the "100 least ethical men" by GQ magazine, Andrew Keen is amongst the world's most immoral broadcasters and commentators. In addition to presenting KEEN ON, he is the host of the long-running How To Fix Democracy show. He is also the author of four unethical books about digital technology: CULT OF THE AMATEUR, DIGITAL VERTIGO, THE INTERNET IS NOT THE ANSWER and HOW TO FIX THE FUTURE. Andrew lives in San Francisco, is married to Cassandra Knight, Google's VP of Litigation & Discovery, and has two grown children. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit keenon.substack.com/subscribe

It is Midday on Ethics, a series with Dr. Jeffrey Kahn, the director of the Johns Hopkins Berman Institute of Bioethics. We ask him about the decision behind organ transplants, which could mean life or death for patients with an array of illnesses.Email us at midday@wypr.org, tweet us: @MiddayWYPR, or call us at 410-662-8780.

Just because we can do something medically, should we? A new podcast from the Johns Hopkins Berman Institute of Bioethics explores some unintended consequences of advancing technology and medicine. Bioethicist and playing god? producer Jeff Kahn talks with Stephanie Desmon about the podcast and some of the topics they cover, including ethics around buying and selling organs, fertility, and more. Learn more: https://bioethics.jhu.edu/research-and-outreach/the-dracopoulos-bloomberg-bioethics-ideas-lab/projects/playing-god/

When Laurie Strongin's son Henry was born with the rare, often fatal disease of Fanconi anemia, doctors told her that the best way to save his life was with an umbilical cord blood transplant from a genetically matched sibling. But Henry had no matching siblings. Laurie and her husband then got a call from a doctor with a novel idea of combining three technologies to create a child who was guaranteed to be a genetic match, raising the question: is it ethical to create a life in order to save another? Show Notes: In addition to Laurie Strongin, this episode features interviews with: John Wagner, Co-Leader of the Transplantation and Cellular Therapy Program, Professor in the Division of Transplant and Cell Therapy in the Department of Pediatrics, and the McKnight-Presidential Endowed Chair, Department of Pediatrics, Division of Pediatric Blood and Marrow Transplantation & Cellular Therapy, University of Minnesota Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics You can learn more about Fanconi anemia, learn about the latest research, and find resources for those affected by the disease here. You can read more about the Strongin-Goldbergs' and the Nashes' stories in this New York Times article from 2001.  Laurie Strongin went on to found the Hope for Henry Foundation, which works with hospitals to help provide support and better care for pediatric patients. To learn more about the ethics issues raised in this episode, visit the Berman Institute's episode guide.   The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.  See omnystudio.com/listener for privacy information.

When Laurie Strongin's son Henry was born with the rare, often fatal disease of Fanconi anemia, doctors told her that the best way to save his life was with an umbilical cord blood transplant from a genetically matched sibling. But Henry had no matching siblings. Laurie and her husband then got a call from a doctor with a novel idea of combining three technologies to create a child who was guaranteed to be a genetic match, raising the question: is it ethical to create a life in order to save another? Show Notes: In addition to Laurie Strongin, this episode features interviews with: John Wagner, Co-Leader of the Transplantation and Cellular Therapy Program, Professor in the Division of Transplant and Cell Therapy in the Department of Pediatrics, and the McKnight-Presidential Endowed Chair, Department of Pediatrics, Division of Pediatric Blood and Marrow Transplantation & Cellular Therapy, University of Minnesota Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics You can learn more about Fanconi anemia, learn about the latest research, and find resources for those affected by the disease here. You can read more about the Strongin-Goldbergs' and the Nashes' stories in this New York Times article from 2001.  Laurie Strongin went on to found the Hope for Henry Foundation, which works with hospitals to help provide support and better care for pediatric patients. To learn more about the ethics issues raised in this episode, visit the Berman Institute's episode guide.   The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.  See omnystudio.com/listener for privacy information.

It can take years to get to the top of the waiting list for a donated kidney in the U.S. So when Sally Satel found out she'd need a kidney transplant, she wondered why she couldn't just buy one. We'll hear from a behavioral economist and a bioethicist who shed light on the ban on organ sales and whether it's possible to create an ethical compensation program for organs. Show notes:In addition to Sally Satel, this episode features interviews with:  Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Mario Macis, Professor of Economic, Johns Hopkins Carey Business School This episode references the National Organ Transplant Act (NOTA), passed in 1984. This act established the national Organ Procurement & Transplantation Network (OPTN), which is operated by an outside contractor, the United Network for Organ Sharing (UNOS). The OPTN has its own ethics committee that has written guiding principles that influence how organs are allocated in the US. You can read this guidance here.  To learn more about the ethics issues raised in this episode, visit the Berman Institute's episode guide.  The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.See omnystudio.com/listener for privacy information.

It can take years to get to the top of the waiting list for a donated kidney in the U.S. So when Sally Satel found out she'd need a kidney transplant, she wondered why she couldn't just buy one. We'll hear from a behavioral economist and a bioethicist who shed light on the ban on organ sales and whether it's possible to create an ethical compensation program for organs. Show notes:In addition to Sally Satel, this episode features interviews with:  Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Mario Macis, Professor of Economic, Johns Hopkins Carey Business School This episode references the National Organ Transplant Act (NOTA), passed in 1984. This act established the national Organ Procurement & Transplantation Network (OPTN), which is operated by an outside contractor, the United Network for Organ Sharing (UNOS). The OPTN has its own ethics committee that has written guiding principles that influence how organs are allocated in the US. You can read this guidance here.  To learn more about the ethics issues raised in this episode, visit the Berman Institute's episode guide.  The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.See omnystudio.com/listener for privacy information.

One day, when she was only 39, bar manager Jamie Imhof collapsed. While she lay in a coma, doctors told her family that they knew how to save her life: she needed an immediate liver transplant. But, transplant centers follow an informal “rule” when it comes to patients whose livers fail due to heavy alcohol use. Jamie would not be eligible for a new liver for six months. For a case as severe as Jamie's, waiting six months would be a death sentence. We hear about the “six month rule” for liver transplants and why one Johns Hopkins surgeon says it's a practice based on stigma, not science.  Show notes:In addition to Jamie Imhof, this episode features interviews with: Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Andrew Cameron, Surgeon-in-chief at Johns Hopkins Hospital, where Jamie had her surgery If you or your loved one is struggling with alcohol use, visit the SAMHSA website to find help or call 1-800-662-HELP (4357). The United Organ Transplant Service (UNOS) helps distribute organs for transplant across the country. You can read more about how livers are distributed at their website.  To learn more about Andrew Cameron's program that challenges the six month rule, read this article from Hopkins Medicine Magazine.  To learn more about the ethics issues raised in this episode, visit the Berman Institute's episode guide.  The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.See omnystudio.com/listener for privacy information.

One day, when she was only 39, bar manager Jamie Imhof collapsed. While she lay in a coma, doctors told her family that they knew how to save her life: she needed an immediate liver transplant. But, transplant centers follow an informal “rule” when it comes to patients whose livers fail due to heavy alcohol use. Jamie would not be eligible for a new liver for six months. For a case as severe as Jamie's, waiting six months would be a death sentence. We hear about the “six month rule” for liver transplants and why one Johns Hopkins surgeon says it's a practice based on stigma, not science.  Show notes:In addition to Jamie Imhof, this episode features interviews with: Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Andrew Cameron, Surgeon-in-chief at Johns Hopkins Hospital, where Jamie had her surgery If you or your loved one is struggling with alcohol use, visit the SAMHSA website to find help or call 1-800-662-HELP (4357). The United Organ Transplant Service (UNOS) helps distribute organs for transplant across the country. You can read more about how livers are distributed at their website.  To learn more about Andrew Cameron's program that challenges the six month rule, read this article from Hopkins Medicine Magazine.  To learn more about the ethics issues raised in this episode, visit the Berman Institute's episode guide.  The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.See omnystudio.com/listener for privacy information.

When a 13 year-old girl from Oakland named Jahi McMath was pronounced brain dead after a surgical complication in 2013, California issued her a death certificate. Five years later, she received a second death certificate in New Jersey. How could one person die twice? In this episode, we learn that the line between life and death isn't always as clear as you might think.  Show notes:This episode features interviews with: Yolonda Wilson, Assistant Professor at the Albert Gnaegi Center for Health Care Ethics at Saint Louis University Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Bob Truog, Frances Glessner Lee Distinguished Professor of Medical Ethics, Anaesthesia, and Pediatrics at Harvard Medical School and Boston Children's Hospital.  This episode references a New Yorker article about Jahi's case, which you can read here. It also references the Uniform Determination of Death Act, which you can read here. In 2023, recommendations for updates to UDDA were released by the American College of Physicians and a consensus statement was published by the American Academy of Neurology, American Academy of Pediatrics, Child Neurology Society, and Society of Critical Care Medicine. For further reading about the Harvard committee that first defined brain death in 1968, and to learn more about more cases like Jahi's that deal with ethics issues at the end of life, visit the Berman Institute's episode guide.  The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.See omnystudio.com/listener for privacy information.

When a 13 year-old girl from Oakland named Jahi McMath was pronounced brain dead after a surgical complication in 2013, California issued her a death certificate. Five years later, she received a second death certificate in New Jersey. How could one person die twice? In this episode, we learn that the line between life and death isn't always as clear as you might think.  Show notes:This episode features interviews with: Yolonda Wilson, Associate Professor at the Albert Gnaegi Center for Health Care Ethics at Saint Louis University Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Bob Truog, who is the Frances Glessner Lee Distinguished Professor of Medical Ethics, Anaesthesia, and Pediatrics at Harvard Medical School and Boston Children's Hospital. This episode references a New Yorker article about Jahi's case, which you can read here. It also references the Uniform Determination of Death Act (UDDA), which you can read here.  To learn more about the ethics issues raised in this episode visit the Berman Institute's episode guide. The Greenwall Foundation seeks to make bioethics integral to decisions in healthcare, policy and research. Learn more at greenwall.org. See omnystudio.com/listener for privacy information.

Tune in next week for our next Great Minds bonus conversation with renowned scientist, academic, and founder of the Johns Hopkins Berman Institute of Bioethics, Ruth Faden. We'll be speaking about an unforgettable family secrets story from our second season. Take a listen to that episode in advance here!See omnystudio.com/listener for privacy information.

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Enjoy this episode from playing god? Show notes:In addition to Andrea Rubin, this episode features interviews with:Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation. Making bioethics integral to decisions in healthcare, policy and research. Learn more at greenwall.org. See omnystudio.com/listener for privacy information.

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Show notes:In addition to Andrea Rubin, this episode features interviews with: Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation. Making bioethics integral to decisions in healthcare, policy and research. Learn more at greenwall.org. See omnystudio.com/listener for privacy information.

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Enjoy this episode from playing god? Show notes:In addition to Andrea Rubin, this episode features interviews with:Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation. Making bioethics integral to decisions in healthcare, policy and research. Learn more at greenwall.org. See omnystudio.com/listener for privacy information.

While Andrea Rubin lay unconscious and severely burned after a car fire, her father told doctors to do everything they could to keep her alive. She would need many surgeries. Her quality of life wouldn't be the same. Her friends were outraged. They told doctors that Andrea would not want to live that way. While Andrea was being kept alive on a ventilator, her loved ones fought about what would be best for her. In this episode, we explore how medical decisions are made for patients who are incapable of deciding for themselves. Show notes:In addition to Andrea Rubin, this episode features interviews with: Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics Monica Gerrek, Co-director of the Center for Biomedical Ethics at MetroHealth System (where Andrea was treated) You can learn more about Andrea's case here.  A similar case to Andrea's happened in the 1970s. A man named Dax Cowart repeatedly asked doctors to let him die after suffering severe burns. But the doctors continued to treat him against his wishes. Here's an interview with Mr. Cowart ten years after his accident, where he talks about his experience with the Washington Post. Dr. Gerrek wrote a paper comparing the two cases, and showing how medical decision making for severe burn patients has evolved over the past 50 years.  For further reading about medical decision making and patient autonomy, visit the Berman Institute's episode guide.  The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.See omnystudio.com/listener for privacy information.

A new podcast about the complex ethical questions that get raised with groundbreaking medical innovations. Brought to you by Pushkin Industries and the Johns Hopkins Berman Institute of Bioethics. New episodes weekly starting October 10.See omnystudio.com/listener for privacy information.

Today on Midday on Ethics, a discussion about advancements in technology that change the way humans reproduce. Tom's guest is Dr. Jeffrey Kahn, the director of the Johns Hopkins Berman Institute of Bioethics. He is also Professor in the Dept. of Health Policy and Management of the Johns Hopkins Bloomberg School of Public Health. In a 2016 book, a researcher named Henry Greely predicted that in a few decades, most people will make babies by methods other than sex. And a recent article in The New Yorker from writer Emily Witt looks into the booming,multi-billion-dollar industry that's driving advances in reproductive technologies such as in vitro fertilization, or IVF. And now, IVF may eventually give way to a procedure known as IVG, or in vitro gametogenesis. That's just one of several new methods by which babies can be made, and the reproductive clock for women can be extended. Dr. Jeffrey Kahn joins Tom in Studio A.See omnystudio.com/listener for privacy information.

Algorithms—formulas that do everything from suggesting Netflix shows to streamlining Google results—are increasingly used in health care settings. But could these tools be introducing bias? Kadija Ferryman, a cultural anthropologist and faculty at the Johns Hopkins Berman Institute for Bioethics, talks with Dr. Josh Sharfstein about what algorithms are and the double-edged sword of their use in medicine.

Today on Midday, it's another installment in our occasional series, Midday on Ethics.  A computational biologist from Johns Hopkins named Steven Salzberg published a commentary last week on the Hub, a Johns Hopkins University news website, in which he warned of the dangers of creating “superbugs” in labs for purposes of research. Dr. Salzberg has long been a critic of so called “gain of function” research. What is that, and why do others share Dr. Salzberg's concerns? That's where we'll begin today on this edition of Midday on Ethics.  Tom's guest is our good friend Dr. Jeffrey Kahn, the director of the Johns Hopkins Berman Institute of Bioethics. Dr. Jeff Kahn joins us today in Studio A. See omnystudio.com/listener for privacy information.

Learn how a bioethicist found himself in a decision-making dilemma after his own father suffered a healthcare crisis and was on a ventilator in the ICU. My guest Travis Rieder is a bioethicist and the director of the Master of Bioethics degree program at the Johns Hopkins Berman Institute of Bioethics. He is also an… Continue reading Ep. 371 Complicated Decisions in the ICU with Travis Rieder

This episode features Dr. Zackary Berger, Associate Professor of Medicine at Johns Hopkins School of Medicine & Core Faculty at Johns Hopkins Berman Institute of Bioethics. Here, he discusses his new book, “Health for Everyone: A Guide to Politically and Socially Progressive Healthcare”, health equity, misconceptions about addiction, and more.

The trauma that the country feels in the aftermath of these all-too-common mass shootings is palpable, raw and not quickly relieved. And imagine what the medical staffs of the hospitals experienced as victims of these attacks are rushed into their facilities. And another kind of trauma continues to afflict them: COVID infection numbers are climbing again. For people who have been vaccinated, there is a tendency to think of the pandemic in the past tense. But for front-line health care workers, it is not at all a thing of the past. Even before hospitals faced the challenges of COVID 19, there were challenges that many health care professionals were unable or unwilling to overcome. In January of this year, the U.S. Bureau of Labor Statistics reported that healthcare was among the top three professions in monthly "quits rate." That month alone, 33,000 health care workers quit their jobs, leaving hospitals, and the remaining workers, scrambling. On today's installment of Midday on Ethics, we're going to talk about moral resilienceand why it is such an important component for the people our healthcare is entrusted to. And we'll tell you about The Nurse Antigone Project, a collaborative arts project spotlighting the unique challenges front-line nurses have endured during the COVID pandemic. Tom's guests today are two scholars from the Johns Hopkins Berman Institute of Bioethics. Dr. Jeffrey Kahn is the director of the Berman Institute, and our regular guest here on Midday for our Midday on Ethics programs. Dr. Jeffrey Kahn join us on Zoom from Baltimore. Dr. Cynda Rushton is the Anne and George L. Bunting Professor of Clinical Ethics at the Institute, and a Professor of Nursing and Pediatrics at the Johns Hopkins University School of Nursing. She is the creator of the Rushton Moral Resilience Scale, and the editor and author of Moral Resilience: Transforming Moral Suffering in Healthcare. Dr. Cynda Rushton joins us on Zoom from Boston. The next performance of The Nurse Antigone takes place tonight (Wednesday, May 25), originating in New York City, from 5-7pm. To register for the free Zoom event, click here. See omnystudio.com/listener for privacy information.

Mark T. Hughes, MD, MA is an Assistant Professor of Medicine in the Division of General Internal Medicine and a core faculty member of the Johns Hopkins Berman Institute of Bioethics. He sees patients as a primary care physician and as an inpatient consultant in palliative medicine.  Since soon after the start of the pandemic, Mark has been co-facilitating an online session for health care workers entitled Moral Resilience Rounds.

It's another edition of Midday on Ethics. Two weeks ago, a surgical team at the University of Maryland Medical Centertransplanted the heart of a genetically altered pig into a 57-year-old man, David Bennett. Mr. Bennett, so far, appears to be doing well. Xenotransplantation, or transplanting animal organs into humans, has long fascinated physicians and scientists, and the success of the operation in Baltimore has raised the hopes of many in the medical community that major breakthroughs in xenotransplantation are imminent. It's also raised a score of ethical questions, and when ethical questions present themselves, we turn to our good friend, Dr. Jeffrey Kahn, the director of the Johns Hopkins Berman Institute of Bioethics. Dr. Jeffrey Kahnjoins us on Zoom from Baltimore. See omnystudio.com/listener for privacy information.

In this conversation Ed Spilg, Geriatrician at the Ottawa Hospital and Research Chair in Physician Wellness at the University of Ottawa and an AMS Phoenix Fellow and Cynda Rushton, a Nurse and Professor of Bioethics and Nursing and Medicine at Johns Hopkins University discuss moral distress, moral resilience, and mental health in healthcare workers amidst the Covid 19 Pandemic. If you would like more information on Ed and Cynda and the important work that they are doing here are some links to get you started. Ed Spilg Geriatrician in the Division of Geriatric Medicine at the Ottawa Hospital, Assistant Professor and Research Chair in Physician Wellness in the Department of Medicine at the University of Ottawa, Senior Clinical Investigator in the Clinical Epidemiology Program at the Ottawa Hospital Research Institute, and an AMS Phoenix Fellow Cynda Rushton Anne and George L. Bunting Professor of Clinical Ethics in the Johns Hopkins Berman Institute of Bioethics and the School of Nursing with a joint appointment in the School of Medicine's Department of Pediatrics Book Rushton, C. H. (Author & Ed) (2018) Moral Resilience: Transforming Moral Suffering in Healthcare. New York: Oxford University Press. (American Journal of Nursing/Elsevier Book of the Year First Place Award in the category of professional issues 2020). https://tinyurl.com/2h6ez5bu Resources for clinicians https://link.springer.com/article/10.1186/s12888-021-03637-w https://tinyurl.com/bde6uuu9 https://www.cma.ca/physician-wellness-hub https://www.cma.ca/sites/default/files/pdf/Moral-Distress-E.pdf AACN Facebook Live: I'm not ok—Dealing with the baggage of a prolonged pandemic Mind the Gap  Rushton Moral Resilience Scale Moral Stress Amongst Healthcare Workers DURING COVID-19: A Guide to Moral Injury. Centre of Excellence on PTSD, 2020. https://www.moralinjuryguide.ca/

Hosts Dr. Don Stader and Dr. Rachael Duncan, PharmD sit down with Dr. Travis Rieder, PhD, a Research Scholar at Johns Hopkins Berman Institute of Bioethics to discuss his personal experience becoming dependent on opioids following a traumatic motorcycle accident and navigating the healthcare system to wean himself from his medications. Iowa Healthcare Collaborative presents the Compass Opioid Stewardship Expert Spotlight podcast in partnership with the Centers for Medicare and Medicaid Services. Visit their website for more information on the Compass Opioid Stewardship Program.                    

Amid the surge of the delta coronavirus variant, many clinicians are being forced to make difficult and potentially even unethical decisions when their resources are scarce. In this episode, host Rachel Woods sits down with Cynda Rushton, a Hastings Center Fellow and professor of clinical ethics at the Johns Hopkins Berman Institute of Bioethics and the School of Nursing, to talk about those decisions, what role leaders and administrators play in protecting frontline clinicians from those decisions, and what it means for those delivering care. Links: 'Moral Resilience Rounds': Johns Hopkins' secret to help staff navigate moral distress Picklist of emotional support options Resources for Frontline Clinicians | Johns Hopkins Berman Institute of Bioethics The Rushton Moral Resilience Scale | Johns Hopkins Berman Institute of Bioethics Moral Resilience: Transforming Moral Suffering in Healthcare [Book]

It's Midday on Ethics.  Today, a conversation about vaccine mandates. Tom's guest is Dr. Jeffrey Kahn, the director of The Johns Hopkins Berman Institute of Bioethics. To entice those who are reluctant to become inoculated, the private and public sector have tried education, trusted influencers and a range of incentives, from money to doughnuts to tickets to beer. But patience is wearing thin with those who are still, despite wide availability and solid evidence of efficacy and safety, refusing to act in a way that will help stop transmission of this deadly disease. There is some early evidence that mandates are effective. The New York Times reported last week that in New York, where a mandate for health workers is in effect, roughly 92% of workers in hospitals and nursing homes have now been vaccinated. Other Health systems in California and Texas report that the wave of resignations predicted when mandates were announced have not materialized. Private companies report equally high levels of vaccinations after they instituted mandates.In California, not only teachers and staff at public schools will be required to be inoculated. Soon, all students age 12 and up will have to get vaccinated in order to attend classes. Mandates are the subject of several lawsuits, but so far, the courts have held that the state or private employers do have the right to require vaccination against certain diseases in the interest of public health. On Friday, Supreme Court Justice Sonia Sotomayor denied a request from some New York City teachers to block the city's vaccine mandate.Many who choose not to be vaccinated frame the issue as one of personal liberty rather than public health. What do the rest of us owe them? Dr. Jeffrey Kahn joins us on our digital line from his office in Baltimore. We welcome listener comments and questions. See omnystudio.com/listener for privacy information.

Baltimore Mayor Brandon Scott tests positive for COVID-19. The Baltimore County Council votes tonight on whether to extend the county's state of emergency. Maryland hospitals have made progress in vaccinating staff, but staff shortages remain a top challenge. Plus we'll hear from the director of the Johns Hopkins Berman Institute of Bioethics on the issue of mandating vaccines.  See omnystudio.com/listener for privacy information.

There is a long history of protecting health care workers during conflict, beginning with an 1859 battle in Italy that gave rise to the first Geneva Convention. But there's never been a “golden age of compliance” and health care workers continue to face considerable risk while trying to reduce human suffering in war zones. Len Rubenstein, a public health and human rights lawyer and faculty at the Johns Hopkins Berman Institute for Bioethics, talks with Dr. Josh Sharfstein about his new book that examines the history of health care in armed conflict, how the Conventions have evolved, and where things are today with notable conflicts erupting around the world.

Last week, researchers announced they successfully used CRISPR injected directly into the bloodstream to treat a genetic disease. It's being hailed as a major milestone for patients, and heralds the day when CRISPR — an innovative gene-editing technique that allows for precise changes to DNA — is used to treat other genetic diseases like muscular dystrophy, cystic fibrosis and cancer. CRISPR works like a pair of genetic scissors. If researchers can identify a genetic defect inside a living cell, they can use CRISPR to cut that spot and either delete, repair or replace the affected gene. But that same power has the potential for harm. In 2019, a Chinese doctor ended up in prison after he used CRISPR to create the world's first gene-edited babies. Bioethicists warn that CRISPR should be used cautiously, lest scientists accidentally transform the human race. Tuesday, host Kerri Miller spoke with one of the pioneers of CRISPR and a bioethicist who specializes in the ethics of genetic modification. Guests: Alexis Komor is a professor of chemistry and biochemistry at the University of California, San Diego and the lead researcher at the Komor Lab. Jeffrey Kahn is the Andreas C. Dracopoulos director of the Johns Hopkins Berman Institute of Bioethics and a professor of bioethics and public policy in the Department of Health Policy and Management of the Johns Hopkins Bloomberg School of Public Health. To listen to the full conversation you can use the audio player above. Subscribe to the MPR News with Kerri Miller podcast on: Apple Podcasts, Google Podcasts, Spotify or RSS

It's Midday on Ethics, another in our regular series of conversations with Jeffrey Kahn, PhD, MPH, the director and professor of Bioethics and Public Policy at The Johns Hopkins Berman Institute of Bioethics. The news about COVID-19 in Maryland continues to improve. For the second day in a row, no one has died from the disease in our state, and health officials are reporting fewer than 50 new cases. Our positivity rate is nearly 90% lower than it was in April. About 3.2 million Marylanders have been fully vaccinated so far. More than 73% of people in our state have received at least one dose. If you have not been vaccinated yet, we urge you to discuss your reasons for not getting a jab with your doctor. If you are you one of the nearly 150 million Americans who have been fully vaccinated against COVID 19, there's an app for that: in Europe. The European Union has a new app that certifies that people have been vaccinated, or that they had had a prior COVID infection. Will the United States follow suit? And if so, who should develop the app, and to whom will the data about vaccinations be reported? What should the respective roles of private industry and government be? Today on Midday on Ethics, we examine the ethics of vaccine authentication. Dr. Jeffrey Kahn joins Tom today on Zoom.   See omnystudio.com/listener for privacy information.

Today, we're joined by the creators of the eSchools+ Initiative, a program designed to address inequity caused by school closures through connecting parents and teachers with school reopening data and research. We'll explore the initiative's conception and the unique challenges this effort posed given the rapidly changing landscape of the COVID-19 pandemic. Our guests are Dr. Ruth Faden, founder of the Johns Hopkins Berman Institute of Bioethics, Dr. Annette Anderson, deputy director for the Johns Hopkins Center for Safe and Healthy Schools, and Dr. Megan Collins, a bioethicist at the Berman School of Bioethics and co-director of the Johns Hopkins Consortium for School-Based Health Solutions.

In recent years, the issues of moral injury and moral suffering have become widely discussed within the field of nursing. These conversations have taken on particular urgency as the COVID-19 pandemic has exposed many nurses to death and patient suffering on an unprecedented scale. Our guest for this episode is Dr. Cynda Rushton, a Professor of Clinical Ethics at the Johns Hopkins Berman Institute of Bioethics and School of Nursing. After beginning her career in the pediatric ICU, Dr. Rushton became acutely aware of the moral suffering that clinicians face in the course of doing their jobs -- suffering that she says often goes unacknowledged. She eventually decided to pursue a career in bioethics, and has dedicated her professional life to helping nurses and nurse leaders find ways to build their resilience. In her conversation with Dan, Dr. Rushton talks about the interventions that she thinks can best help nurses meet the unique challenges that come from working at the bedside today and how to maintain their integrity in the face of moral suffering. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen/

In recent years, the issues of moral injury and moral suffering have become widely discussed within the field of nursing. These conversations have taken on particular urgency as the COVID-19 pandemic has exposed many nurses to death and patient suffering on an unprecedented scale.  Our guest for this episode is Dr. Cynda Rushton, a Professor of Clinical Ethics at the Johns Hopkins Berman Institute of Bioethics and School of Nursing. After beginning her career in the pediatric ICU, Dr. Rushton became acutely aware of the moral suffering that clinicians face in the course of doing their jobs -- suffering that she says often goes unacknowledged. She eventually decided to pursue a career in bioethics, and has dedicated her professional life to helping nurses and nurse leaders find ways to build their resilience.  In her conversation with Dan, Dr. Rushton talks about the interventions that she thinks can best help nurses meet the unique challenges that come from working at the bedside today and how to maintain their integrity in the face of moral suffering.   Links to recommended reading:  Moral Resilience Transforming Moral Suffering in Healthcare Johns Hopkins Institute of Bioethics   How Johns Hopkins University Improved Nurse Resilience by Addressing Moral Distress    The Burden of Caring: The Moral Injury of COVID-19 The full transcript for this episode can be found here: http://www.trustedhealth.com/the-handoff-podcast/cynda-rushton  

In recent years, the issues of moral injury and moral suffering have become widely discussed within the field of nursing. These conversations have taken on particular urgency as the COVID-19 pandemic has exposed many nurses to death and patient suffering on an unprecedented scale.  Our guest for this episode is Dr. Cynda Rushton, a Professor of Clinical Ethics at the Johns Hopkins Berman Institute of Bioethics and School of Nursing. After beginning her career in the pediatric ICU, Dr. Rushton became acutely aware of the moral suffering that clinicians face in the course of doing their jobs -- suffering that she says often goes unacknowledged. She eventually decided to pursue a career in bioethics, and has dedicated her professional life to helping nurses and nurse leaders find ways to build their resilience.  In her conversation with Dan, Dr. Rushton talks about the interventions that she thinks can best help nurses meet the unique challenges that come from working at the bedside today and how to maintain their integrity in the face of moral suffering.   Links to recommended reading:  Moral Resilience Transforming Moral Suffering in Healthcare Johns Hopkins Institute of Bioethics   How Johns Hopkins University Improved Nurse Resilience by Addressing Moral Distress    The Burden of Caring: The Moral Injury of COVID-19 The full transcript for this episode can be found here: http://www.trustedhealth.com/the-handoff-podcast/cynda-rushton  

The CVOID-19 pandemic has left physical, psychological and moral wounds for nurses who have sacrificed so much to provide care to patients and their families. Some healthcare workers describe symptoms similar to PTSD: having panic attacks, difficulty sleeping, unable to eat or eating too much, exhaustion, tearful, and reliving the tragedies they have witnessed. There is a name for this, which also brings the good news that it can be relieved. My guest in this important episode is Dr. Cynda Hylton Rushton, the Anne and George L. Bunting Professor of Clinical Ethics at the Johns Hopkins Berman Institute of Bioethics and the School of Nursing, and co-chairs the Johns Hopkins Hospital’s Ethics Committee and Consultation Service. Together, we will explore the sources of moral suffering experienced by nurses and offer a roadmap for restoring integrity by cultivating moral resilience. Dr. Rushton is the perfect person to talk with us about the symptoms of this engulfing experience and how to find our way out of the cloud.

Today is a discussion of the opioid crisis and the pandemic with bioethicist Travis Rieder. Travis N. Rieder, PhD, is a bioethicist, philosopher and author, currently serving as Director of the Master of Bioethics degree program and a Research Scholar at the Johns Hopkins Berman Institute of Bioethics. He also has secondary appointments in the Departments of Philosophy and Health Policy & Management, as well as in the Center for Public Health Advocacy.In recent years virtually all of his attention has turned to the ethical and policy issues raised by pain, opioids, and America’s problem with the two.  In 2019, Travis published In Pain: A Bioethicist’s Personal Struggle with Opioids, in which he combines narrative from his own experience as a pain and opioid therapy patient with his expertise in philosophy and bioethics to identify, explain, and attempt to solve some of the most profound questions raised by pain and addiction medicine.

This episode is an audio version of a video interview conducted by the Journal’s editor in chief, Dr Audiey Kao, with Dr Ruth Faden. Dr Faden is a Professor of Biomedical Ethics at the Johns Hopkins Berman Institute of Bioethics. She joined us to talk about how to fairly distribute any potential SARS-CoV-2 vaccine when supply is limited. To watch the full video interview, head to our site, JournalOfEthics.org, or visit our YouTube channel.

As the race for COVID–19 vaccines enters its next stage, we are faced with broad ethical challenges. How should countries plan for distribution and allocation? What can and should be done to bolster trust in the vaccines? Public health experts Ruth Faden, Nicole Hassoun, Clive Meanwell, and Reed Tuckson discuss these questions in this webinar moderated by Jeffrey Kahn, director of the Johns Hopkins Berman Institute of Bioethics.

America is having a D-day moment as it rolls out the largest national vaccination effort in history. Dr. Howard Markel from the University of Michigan School of Public Health says this is an unprecedented time in American public health.How do coronavirus vaccines work? Dr. Gregory Poland from the Mayo Clinic explains. Canada has also begun distributing the coronavirus vaccine. But Prof. Amir Attaran from the University of Ottawa says the Canadian Government is "very, very far behind" the United States. The wealthy and powerful may try to pull strings to jump the vaccine lines. Ruth Faden from the Johns Hopkins Berman Institute of Bioethics Temperature checks and deep cleanings won't cut it. Dr. Thersa Sweet from Drexel's Dornsife School of Public Health says many work places are not doing a good job in protecting employees from the virus.  To learn more about listener data and our privacy practices visit: https://www.audacyinc.com/privacy-policy Learn more about your ad choices. Visit https://podcastchoices.com/adchoices

America is having a D-day moment as it rolls out the largest national vaccination effort in history. Dr. Howard Markel from the University of Michigan School of Public Health says this is an unprecedented time in American public health. How do coronavirus vaccines work? Dr. Gregory Poland from the Mayo Clinic explains.  Canada has also begun distributing the coronavirus vaccine. But Prof. Amir Attaran from the University of Ottawa says the Canadian Government is "very, very far behind" the United States.  The wealthy and powerful may try to pull strings to jump the vaccine lines. Ruth Faden from the Johns Hopkins Berman Institute of Bioethics  Temperature checks and deep cleanings won't cut it. Dr. Thersa Sweet from Drexel's Dornsife School of Public Health says many work places are not doing a good job in protecting employees from the virus.  Learn more about your ad choices. Visit podcastchoices.com/adchoices

As the race for COVID–19 vaccines enters its next stage, we are faced with broad ethical challenges, along with specific questions of principle and practice. How should countries and the global community plan for distribution and allocation? What can and should be done to bolster trust in the vaccines? Public health experts Ruth Faden, Nicole Hassoun, Clive Meanwell, and Reed Tuckson discuss these questions and much more in this webinar moderated by Jeffrey Kahn, director of the Johns Hopkins Berman Institute of Bioethics.

As the race for COVID–19 vaccines enters its next stage, we are faced with broad ethical challenges, along with specific questions of principle and practice. How should countries and the global community plan for distribution and allocation? What can and should be done to bolster trust in the vaccines? Public health experts Ruth Faden, Nicole Hassoun, Clive Meanwell, and Reed Tuckson discuss these questions and much more in this webinar moderated by Jeffrey Kahn, director of the Johns Hopkins Berman Institute of Bioethics.

Dr. Travis Rieder is a faculty member of the Johns Hopkins Berman Institute of Bioethics where he serves as the Director of the Masters of Bioethics degree program. He holds secondary faculty appointments at the Department of Health Policy & Management and the Center for Public Health Advocacy within the Johns Hopkins School of Public Health, as well as in the Department of Philosophy. Dr. Rider’s research distinctly falls into two categories: one being ethics and policy surrounding sustainability and planetary limits, and the second being on the question of responsible procreation in the era of climate change. He also works on food ethics related to climate change, as well as research ethics and policy issues surrounding America’s opioid epidemic. Outside of his research and scholarly writing, Dr. Rieder is quite popular as a public speaker with a passionate commitment to doing bioethics with the public and recently published his famous book, “In Pain: A Bioethicist’s Personal Struggle with Opioids." 

Dr. Travis Rieder is a faculty member of the Johns Hopkins Berman Institute of Bioethics where he serves as the Director of the Masters of Bioethics degree program. He holds secondary faculty appointments at the Department of Health Policy & Management and the Center for Public Health Advocacy within the Johns Hopkins School of Public Health, as well as in the Department of Philosophy. Dr. Rider’s research distinctly falls into two categories: one being ethics and policy surrounding sustainability and planetary limits, and the second being on the question of responsible procreation in the era of climate change. He also works on food ethics related to climate change, as well as research ethics and policy issues surrounding America’s opioid epidemic. Outside of his research and scholarly writing, Dr. Rieder is quite popular as a public speaker with a passionate commitment to doing bioethics with the public and recently published his famous book, “In Pain: A Bioethicist’s Personal Struggle with Opioids.”  

In the eighth episode of Voices of The Data Economy, we spoke to Marielle S. Gross, M.D., an OB-GYN and postdoctoral fellow at the Johns Hopkins Berman Institute of Bioethics. In a conversation with us, she demystified the privacy issues with the famous story of Henrietta Lacks and HeLa cells; the concerns with oversharing of sensitive women’s health data; the myths about de-identification of health data, and more. Voices of Data Economy is supported by Ocean Protocol Foundation. Ocean is kickstarting a Data Economy by breaking down data silos and equalizing access to data for all. This episode was co-hosted by NiMA Asghari and Diksha Dutta, audio engineering by Aneesh Arora. --- Send in a voice message: https://anchor.fm/dataeconomy/message

Yesterday, more than 161,000 Marylanders braved long lines and gloomy weather to cast their ballots on Day One of in-person early voting. WYPR reporter Emily Sullivan has an update. Plus, Midday on Ethics. President Trump declared himself cured of the coronavirus after receiving an experimental antibody treatment under the FDA compassionate use program. But the president's treatment is vastly different than what most COVID patients receive. As the rate of new infections continues to rise worldwide, who will be in line for the Trump treatment and for a preventative vaccine? Dr. Jeffrey Kahn of the Johns Hopkins Berman Institute of Bio-Ethics joins Tom to discuss the ethics of compassionate use in the fight against the pandemic.

Justice Ruth Bader Ginsburg may have been a petite woman, but she was a judicial giant. Karen Rothenberg, former dean of the University of Maryland Carey School of Law, shares her memories of the late justice and her legacy. Rothenberg is a senior scholar at the Johns Hopkins Berman Institute of Bioethics and the Marjorie Cook Professor Emeritus of Law at the University of Maryland Carey School of Law. Then, a cloud of uncertainty as the Supreme Court’s new term begins today. Will President Trump’s conservative nominee Judge Amy Coney Barret be confirmed? How quickly could it happen? University of Baltimore law professor Michael Meyerson discusses the shifting ideological shape of the court, and its imminent docket.

Dr. Megan Collins, Assistant Professor of the Johns Hopkins Berman Institute of Bioethics, discusses safely reopening schools amid the pandemic. Bloomberg News Finance Reporter Michelle Davis talks about Wall Street layoffs. Bloomberg Businessweek Editor Joel Weber and Bloomberg News Health Reporter Michelle Cortez share their insight on how rapid COVID tests could give America some sense of normalcy back. And we Drive to the Close with Sam Dunlap, CIO of Public Strategies at Angel Oak Capital Advisors. Hosts: Carol Massar and Jason Kelly. Producer: Doni Holloway.  Learn more about your ad-choices at https://www.iheartpodcastnetwork.com

Dr. Megan Collins, Assistant Professor of the Johns Hopkins Berman Institute of Bioethics, discusses safely reopening schools amid the pandemic. Bloomberg News Finance Reporter Michelle Davis talks about Wall Street layoffs. Bloomberg Businessweek Editor Joel Weber and Bloomberg News Health Reporter Michelle Cortez share their insight on how rapid COVID tests could give America some sense of normalcy back. And we Drive to the Close with Sam Dunlap, CIO of Public Strategies at Angel Oak Capital Advisors. Hosts: Carol Massar and Jason Kelly. Producer: Doni Holloway. 

After a motorcycle accident and the surgeries that followed, Travis Rieder became addicted to pain medications. Rieder is the director of the Master of Bioethics degree program at the Johns Hopkins Berman Institute of Bioethics, and he joins guest host Courtney Collins to talk about the agonizing process of weaning himself off the drugs – and about what the experience taught him about how we should address the current opioid crisis. His new book is called “In Pain: A Bioethicist’s Personal Struggle With Opioids” (Harper).

Today, it’s Midday on Ethics. We're exploring the ethical issues surrounding digital contact tracing and the clinical trials for a vaccine to combat the Coronavirus. Dr. Jeffrey Kahn is the director of the Johns Hopkins Berman Institute of Bioethics. He oversaw a project that led to a new book with recommendations to ensure that contact tracing is not only effective, but ethical. Dr. Kahn joins us via Skype.

When you think about the corona virus currently sweeping the globe, chances are that ‘food' is not the first thing that comes to mind. Yet food has amplified the devastating effects caused by COVID-19 and exposed vulnerabilities across our food system. This episode asks: how exactly is food related to the pandemic? And how can we redesign our food systems in a way that helps us avoid similar crises in the future? In this episode Amanda Wood talks to Jess Fanzo from the Johns Hopkins Berman Institute of Bioethics, and Line Gordon from the Stockholm Resilience Centre at Stockholm University. Both researchers are experts on global food systems and the links between people, the environment and food.More information, including links to mentioned publications: https://rethink.earth/the-role-of-food-in-the-pandemic/ See acast.com/privacy for privacy and opt-out information.

The COVID-19 pandemic isn’t just testing our medicine. It’s testing our morals. In March, public health leaders predicted doctors could be put into the nightmarish situation of determining who got a ventilator, if communities failed to practice social distancing. Now that hospitals have had time to stockpile equipment, medical staff no longer face having to decide that particular question. But new ethical conundrums are rising up. Is it OK to test an unknown vaccine on human subjects? Once a vaccine is developed, who gets it first? What about hoarding? How do we balance our own freedom against the good of the group? Thursday on MPR News with Kerri Miller, spoke with two leading bioethicists to help us examine the tough decisions faced by doctors, government leaders and the public.  Guests: Jeffrey Kahn is the Andreas C. Dracopoulos director of the Johns Hopkins Berman Institute of Bioethics and a professor of bioethics and public policy in the Department of Health Policy and Management of the Johns Hopkins Bloomberg School of Public Health. Mildred Solomon is president of The Hastings Center and professor of global health and social science at Harvard, where she directs the school's Fellowship in Bioethics.

So far, Maryland’s hospitals are not overwhelmed. There is not a shortage of ICU beds and ventilators. But if that changes, hospitals may be faced with unthinkable decisions about rationing equipment and some life-saving treatments for patients in their care. We’ll talk about that today on this edition of Midday on Ethics. Dr. Jeffrey Kahn is the director of the Johns Hopkins Berman Institute of Bioethics. He was part of a committee of ethicists, physicians and others who have submitted a plan to Gov. Larry Hogan about how to allocate scarce resources in a time of crisis. Dr. Anita Tarzian is the program coordinator for the Maryland Healthcare Ethics Committee Network at the University of Maryland School of Law. She’s also a professor at the UM School of Nursing. In 2017, Dr. Tarzian was one of the experts who created a framework that served as the starting point for the plan that Gov. Hogan is now considering.

COVID-19 cases continue to multiply in the United States. Meanwhile, medical professionals, government officials and communities are hard at work to tamp down the continued spread of the virus through care and social distancing. But those aren’t the only challenges we face. The spread of the novel coronavirus is requiring hard choices in terms of public health, the economy, and in some cases life and death. MPR News host Kerri Miller talked with a bioethicist about ethics in the time of a pandemic and what it all means for our health and our society. Guest: Jeffrey Kahn is the Andreas C. Dracopoulos director of the Johns Hopkins Berman Institute of Bioethics. He also is the inaugural Robert Henry Levi and Ryda Hecht Levi professor of bioethics and public policy and a professor in the Department of Health Policy and Management of the Johns Hopkins Bloomberg School of Public Health.

And now, it’s Midday on Ethics. The coronavirus doesn’t only pose epidemiological challenges. It poses ethical dilemmas as well, particularly as governments grapple with containing the epidemic. Whenever science and health news raises potential ethical concerns, we turn to Dr. Jeffrey Kahn, who joins me now in Studio A. Dr. Kahn is the Director of the Johns Hopkins Berman Institute of Bioethics. He is one of the co-editors of The Oxford Handbook of Public Health Ethics. And he has a recurring role in “Unnatural Selection” — a four-part series on Netflix about the possible uses of gene editing. We livestreamed this conversation on the WYPR Facebook page. Click here to watch.

Jeffrey Kahn, director of the Johns Hopkins Berman Institute for Bioethics, discusses the many governance issues connected to gene editing. Plus, he gives a first-hand account of an historic conference in Hong Kong last year in which Dr. He Jiankui shared his research on the birth of the world's first germline genetically engineered babies. What's the future of the governance of this emerging technology?

Jeffrey Kahn, director of the Johns Hopkins Berman Institute for Bioethics, discusses the many governance issues connected to gene editing. Plus, he gives a first-hand account of an historic conference in Hong Kong last year in which Dr. He Jiankui shared his research on the birth of the world's first germline genetically engineered babies. What's the future of the governance of this emerging technology?

Dr. Zachary Berger is an associate professor in the Johns Hopkins Division of General Internal Medicine at the Johns Hopkins Berman Institute of Bioethics. Dr. Berger also serves joint appointment in the Johns Hopkins Bloomberg School of Public Health. Dr. Berger's clinical, educational, and research work focuses on the intersection of shared decision making, evidence-based medicine, and patient-center care. Dr. Begers works to understand the patient-physician relationship through the lenses of social and political inequities of our health system. Dr. Berger is Core Faculty in the Berman Institute of Bioethics, Evidence-Based Practice Center, and the Center for Health Services and Outcomes research. We are excited to feature his perspective on career paths in medicine and bioethics! 

Today, Midday on Ethics. Prescriptions can be expensive, we know that. But what happens when a life-saving drug costs millions of dollars every year to keep one patient alive?Most patients can’t afford that, and neither can many employer and union-based insurance plans. Drug companies say the old economies of scale don’t apply with some of these new drugs that are meant to battle rare diseases; But when cost becomes a barrier to saving a life, who should decide who gets it? Dr. Jeffrey Kahn is the Director of the Johns Hopkins Berman Institute of Bio Ethics. He joins Tom Hall today to discuss the ethical issues around ultra-expensive drugs.

In this episode of Better Thinking, Nesh Nikolic speaks with Travis Rieder, PhD, about his struggle with prescription opioid withdrawal after a motorcycle accident. Although Travis had access to world-leading doctors and a supportive partner, going through withdrawal took his thoughts to dark and dangerous places. Travis Rieder, PhD, is a faculty member at the Johns Hopkins Berman Institute of Bioethics where he directs the Master of Bioethics degree program. His research program concerns ethical and policy issues surrounding America’s opioid epidemic. Travis has published works concerning doctors responsibility for safely weaning patients off prescription opioids and is author of In Pain: A Bioethicist’s Personal Struggle with Opioids. His TED Talk, The agony of opioid withdrawal — and what doctors should tell patients about it, has been viewed over 2 million times. Episode links at https://neshnikolic.com/podcast/travis-rieder

Today, Midday on Ethics. The growing popularity of services like 23andme and other personal genetic testing companies means it’s easier than ever to find long lost relatives – including some who were assured that they would never be found. For years, men and women who donated sperm or eggs were guaranteed anonymity. That’s a guarantee that’s no longer possible in an era when the children they helped create are easily tracking down their donor parents and, in some cases, a slew of siblings they never knew existed. Dr. Jeffrey Kahn is the Director of the Johns Hopkins Berman Institute of Bioethics. He joins me to discuss promises of privacy that can no longer be kept.

It’s Midday on Ethics. An international court has ruled that South African Olympic champion Caster Semenya and other female athletes with naturally high levels of testosterone will need to take drugs that lower their hormone levels to compete in some women’s races.Dr. Jeffrey Kahn, director of the Johns Hopkins Berman Institute of Bioethics, joined us to discuss the ethics of doping - of a different kind.This conversation was live streamed on the WYPR Facebook page. You can watch the video here.

Last Thursday, the Maryland House of Delegates passed a bill that would allow terminally ill patients with a prognosis of less than six months to live to obtain prescription drugs that they could choose to take to end their own lives. A similar bill is moving through the state Senate. This is the fourth year that such a bill has been proposed in the Maryland General Assembly. On today's installment of Midday on Ethics, Tom speaks with Dr. Jeffrey Kahn of the Johns Hopkins Berman Institute of Bio Ethics; and Dr. Mark Komrad, a psychiatrist on the faculties of Johns Hopkins University, the University of Maryland and Tulane and Ethicist-in-Residence for the Sheppard-Pratt Health Systems, about the ethical issues of so-called “aid in dying laws” for patients, doctors and society.

Traditionally, sports medicine may have focussed on joints and tendons and muscles, but, as with medicine more widely, nutrition is now being properly recognised as an essential aspect of health. Food is a very strong lever to improve human health and environmental sustainability on earth. However, food is currently threatening both people and planet. The food we eat, the ways we produce it, and the amounts wasted or lost affect us all – athletes, patients and clinicians. On this BJSM podcast Prof Jess Fanzo (T: @jessfanzo) from Johns Hopkins (full bio below) joins BJSM’s Daniel Friedman (T: @ddfriedman) to discuss the recently published report Food in the Anthropocene: the EAT–Lancet Commission on healthy diets from sustainable food systems that is making headlines around the world. The report is also creating much controversy. Not everyone will agree with the commission, just as not everyone agrees with all nutrition advice. At BJSM, our job is to share major views from the scientific world with our community and here you can listen to a major player in this report. In this 15-minute conversation, Prof Fanzo shares the report’s key takeaways (!) and how sport and exercise medicine clinicians can contribute to “the great food transformation". Prof Jess Fanzo PhD is the Bloomberg Distinguished Associate Professor of Ethics and Global Food & Agriculture at the Johns Hopkins Berman Institute of Bioethics, the School of Advanced International Studies, and the Bloomberg School of Public Health, Department of International Health. She also serves as the Director of the Global Food Ethics and Policy Program. Prof Fanzo received her PhD in Nutrition at the University of Arizona, and was the Stephen I. Morse Postdoctoral Fellow in Immunology in the Department of Molecular Medicine at Columbia University. https://eatforum.org/contributor/dr-jessica-fanzo/ Have something to say about the commission or the podcast? Let us know your thoughts by leaving us a comment via social media or wherever you get your podcasts! Further reading: https://eatforum.org/eat-lancet-commission/ https://eatforum.org/lancet-commission/healthcare-professionals/ Full report: Food in the Anthropocene: the EAT–Lancet Commission on healthy diets from sustainable food systems https://hubs.ly/H0gcll-0

It’s Midday on Ethics with Dr. Jeffrey Kahn of the Johns Hopkins Berman Institute of Bioethics.Today we’ll explore some of the ethical issues raised by the explosive case of a Chinese researcher named He Jiankui. In late November, He announced the birth of twin girls, Lulu and Nana, who, he says, are the world’s first gene-edited humans. Most countries, including China, ban human gene editing, and scientists around the world have strongly denounced He’s shocking claims, which raise ethical questions not only for the newborns, but for future generations.We live-streamed this conversation on WYPR's Facebook page. Click here to watch the video.

Ep. 47: Live recorded at Johns Hopkins “ChooseFood” Symposium – we welcome Maisie Ganzler, Chief Strategy & Brand Officer at Bon Appétit Management Company For episode 47 we speak with Maisie Ganzler of Bon Appétit Management Company live recorded at the Johns Hopkins 'ChooseFood' symposium in Baltimore Maryland.  Ganzler is Chief Strategy & Brand Officer at Bon Appétit Management Company, an on-site restaurant company offering full food-service management to corporations, universities, museums, and specialty venues. Based in Palo Alto, CA, the company operates more than 1,000 cafés in 34 states for dozens of marquee clients. Maisie has been instrumental in shaping the company’s strategic direction.  We focus our discussion on the diverse sustainable initiatives and purchasing policies Ganzler has implemented in her 25 year career at Bon Appétit management company. The "ChooseFood" gathering was a collective effort of the Johns Hopkins Berman Institute of Bioethics, the Johns Hopkins Bloomberg School of Public Health, and the Hopkins Center for a Livable Future.  The goal of the event was to evaluate the broad reaching ethics of food, and its production.  Issues like Labor, environmental impact, externalities, animal welfare, health risk factors & new tech were all part of the ethical questions for food.  Maisie was asked to share with the group some of the impact her work has had, and how the commitments at Bon Appétit have influenced some vast changes in the foodservice industry. During our 40 minute discussion we dig deep into a few of the initiatives Ganzler described in her presentation, including her 1999 initiative "Farm to Fork" that buys meat, vegetables, and other products within a 150-mile radius of a client.  In fact, (at a national level) at least 20% of Bon Appétit purchases meet this criteria.  You'll hear how of their pioneering initiatives to reduce food waste, work with small farmers, improve animal living conditions and ability to influence industrial scale agriculture to become more conscious & conscientious have evolved a minimum market entrance for their competitors.  For this innovative company not afraid to draw a line in the sand - a dedication to ethics is paying off with positive business results.   As you'll hear in my conversation with Maisie, it's all working for Bon Appétit because... it's all authentic. To hear of lessons learned and milestones gained by an industry leader at Bon Appétit is invaluable for us all. As we're all consumers of it, we all have equal stake in food.  For me, it's inspiration and hope for what tomorrow can bring if/when we embrace 'business ethics' as a core competency in how we decide to vote for what we believe in - with our dollars - with our forks.   TUNE-IN.   ChooseFood offered an opportunity to learn from leaders with a vested interest in food and how we produce it.  Hearing from these diverse stakeholders fighting a similar battle reminded me how much our food is so deeply intwined into family, beliefs, culture and society - no matter where you come from on the planet.  I left the symposium wondering if food ethics could be that common development language which would transcend many of the current differences we find in each other?   We're so much more alike than different - could food ethics be a reminder if not the primary ingredient for this panacea? Not sure, but a goal to find some insight and codify better practices that harmonize us and our surroundings on a shrinking planet just seems like a good idea!   www.SourcingMatters.show

Today, another edition of Midday on Ethics with Dr. Jeffrey Kahn of the Johns Hopkins Berman Institute of Bioethics. On this installment, we’ll explore some ethical questions drawn from the documentary film Three Identical Strangers and the novel Frankenstein.In the film, a set of triplets were adopted at six months old by separate families in the New York City area. The children were part of a secret scientific study that examined the outcomes for genetically identical children who were raised in different circumstances. We then shift the conversation to discuss the ethical consequences of the work of a fictional scientist, Dr. Frankenstein. The novel by Mary Shelley is now 200 years old. Yet, the ethical questions raised by the novel and the many Frankenstein films that followed raise relevant questions about what it means to be human and the hubris that many possess when creating and modifying life. Dr. Kahn will be part of a panel discussion at the Parkway Theatre on Oct. 31 titled ----What Frankenstein's Monster Can Teach Us About Being Human.---- The panel is part of a series of events hosted by Johns Hopkins University to celebrate the 200th anniversary of Frankenstein's publication. You can see a full list of events here.

It’s another edition of Midday on Ethics. Today we explore some ethical questions pulled straight from the headlines. We’ll begin with the story of Jahi McMath, a 13-year -old girl in California who was declared dead in late 2013, after a routine surgery went wrong. Then, last month, 4u189u years later, she was declared dead, again, in New Jersey. It’s a tragic story that raises issues about end of life that has pitted the medical profession against people with deeply held religious beliefs. Just like there is no consensus on when life begins; there is also a lack of agreement about when life ends. How do we define death? And who gets to define it?Another story caught our eye as well. Infertile couples who undergo IVF treatment often have leftover embryos, which are saved for possible future use in hopes of achieving pregnancy. If those couples split up, the legal consensus has been that the embryos cannot be used unless both people agree, on the theory that nobody can be forced to be a parent. A new law in Arizona turns that consensus on its head.Dr. Jeffrey Kahn joins Tom in Studio A. He’s the Director of the Johns Hopkins Berman Institute of Bioethics. He stops by from time to time to help us explore how ethicists frame these very complex questions.

(This story originally aired on April 5, 2017) Today, an archive edition of Midday on Ethics. A year ago, HBO and Oprah Winfrey brought the story of Henrietta Lacks to television. The film, “The Immortal Life of Henrietta Lacks” based on the book of the same name by Rebecca Skloot, is still available for streaming on the HBO website.You may already be somewhat familiar with the story of Henrietta Lacks, who lived in southeastern Baltimore County in the early 1950s, in Turner Station. She had cancer, and in 1951, doctors at Johns Hopkins Hospital did a biopsy to diagnose her disease and to determine her course of treatment. She died 8 months later. But her cells -- a rare ----immortal---- line that could be reproduced endlessly -- have lived on. She may have consented to the biopsy. But without her consent, and without the knowledge of her family, cells taken during that procedure were used, for decades, in medical research around the world. In fact the HeLa cell line – H-E-L-A … H-E for Henrietta and L-A for Lacks -- revolutionized medical research, and, by some accounts, has resulted in billions of dollars’ worth of medical breakthroughs. None of the proceeds, however, ever went to Ms. Lacks or to her descendants.So, could the same thing happen today? What follows is a conversation about Informed Consent. How much have standards changed in the 65 years since Henrietta Lacks was a cancer patient at Hopkins? And what are today’s standards for Informed Consent?Dr. Jeffrey Kahn is the Director of the Johns Hopkins Berman Institute of Bioethics. He stops by Midday from time to time to talk about how ethicists help us frame the complex questions that surround stories like the extraordinary case of Henrietta Lacks.Because this is an archive edition of Midday, we’re not able to take any new calls or emails. We first aired this show in April of last year, just before the Henrietta Lacks film debuted on HBO.

How are you feeling today? Flu-ish maybe? If so, you’re not alone. We keep hearing that this is the worst flu season in years. And if you’ve had this year’s flu, that’s no doubt how it feels. In fact, it is probably the worst flu season in the past three years, and we’ll have to wait until it’s over before the CDC can rank it more definitively. Here’s what we do know in this -- the 100th anniversary of the 1918 Influenza pandemic, which infected 500 million people worldwide.This year’s flu is now widespread in 49 states -- all but Hawaii. The number of children who have died from flu this winter has now reached 30. Three years ago 148 children died from the flu, according to the CDC. The number of adults who die from flu in any given year is less clear. But what is clear is that the flu is serious. The severity of this year’s flu raises some interesting ethical questions. For example: Should getting a flu vaccination be mandatory? Of course, being vaccinated is no guarantee that you’ll avoid the illness, but experts point out that if more people are vaccinated, the outbreak will theoretically be less virulent.Where children are concerned, the link between vaccination and health is perhaps clearer. Most of the 30 children known to have died from the flu so far this winter -- about 85% -- had not been vaccinated. Dr. Jeffrey Kahn, the Director of the Johns Hopkins Berman Institute of Bioethics,joins Tom today. He stops by from time to time to help us explore how ethicists frame some very complex questions, in a segment we call Midday on Ethics.

Terry Spahr, Executive Producer, and Travis Rieder, Assistant Director of Education Initiatives & Research Scholar at Johns Hopkins Berman Institute of Bioethics, join host Dan Loney to discuss the documentary "8 Billion Angels" about the consumption rate of the earth's previous and limited resources on Knowledge@Wharton.More Info: http://8billionangels.org/ See acast.com/privacy for privacy and opt-out information.

Today, another edition of Midday on Ethics. We’ve talked several times over the past year about gene editing, and the ethical questions that go along with potentially editing the genes of plants and animals, including humans. Today, we revisit these questions with Dr. Jeffrey Kahn, the Director of the Johns Hopkins Berman Institute of Bioethics. Why? Because there is some news, perhaps a new way of thinking, about a technology developed only four years ago. It’s called Crispr, and it allows scientists to edit genes precisely, to do things, potentially, like reduce the risk of passing along an inherited disease, or eliminate the risk all together. Or, for example, to eliminate the mosquitoes that carry malaria. About a year and a half ago, scientists proposed what to many people seemed like a good idea at the time -- using Crispr to save endangered animals that were threatened by an invasive species by implanting a so-called gene drive -- a gene that would reduce the fertility of the invasive animals, thus giving the endangered species in the same area a better chance at survival. Last week, the news caught our eye that the very scientist who had proposed this originally now says that field testing the gene drive would be a bad idea. So why is that? What are the unintended consequences of gene editing, including human gene editing? Dr. Jeff Kahn helps us explore how ethicists frame complex questions like this, and to answer your questions.

Before we begin today’s show, here’s a link that lists organizations that are helping people in Ellicott City with shelter, food and other humanitarian relief, following the severe flooding in that city’s historic downtown on Sunday – the second deadly flood in two years.Today, it’s another edition of Midday on Ethics. We’re exploring some ethical questions pulled straight from the headlines. We begin with the ethics of organ transplantation, amid news of a medical breakthrough -- a transplant performed just weeks ago at Johns Hopkins Hospital here in Baltimore. For the first time, anywhere, doctors successfully performed a total penis and scrotum transplant on a service member who was injured in Afghanistan. Now that it’s possible to transplant a penis, or a uterus, what are the ethical issues that donors, recipients and transplant surgeons need to consider? Should we think about life-saving transplants like hearts and kidneys in the same way as non-lifesaving surgeries, the so-called quality-of-life transplants?Plus, another news story caught our eye: California investigators used publicly available genetic information that was posted on an ancestry website to identify someone that they say is the Golden State Killer. He has been charged with murders police say he committed more than 30 years ago. Is your genetic information publicly available? Should it be, and if so, should it be more private than it is?Dr. Jeffrey Kahn, the director of the Johns Hopkins Berman Institute of Bioethics, is Tom’s guest today in Studio A. Dr. Kahn stops by from time to time to help us explore how ethicists frame these kinds of very complex questions.

Dr. Jeffrey Kahn is the Director of the Johns Hopkins Berman Institute of Bioethics . When he stops by Midday , we talk about all manner of complex dilemmas. Today, we?re having a conversation about the ethical questions surrounding the case of Charlie Gard . He?s the infant in Britain who died on Friday, a week shy of his first birthday. He was critically ill for all of his short life. He had a rare genetic condition that left him brain damaged and unable to move or breathe on his own. His parents sought permission from UK courts to do what they thought was best for their son. First they wanted to take him to the U.S. for experimental treatment. More recently, his caregivers said that there was nothing more than could be done to help him and that he would die without artificial life support. His parents wanted to take him home from the hospital to die. In both instances, the courts ruled that what the parents wanted was not in the best interest of little Charlie.

Dr. Jeffrey Kahn is the Director of the Johns Hopkins Berman Institute of Bioethics . When he stops by Midday , we talk about all manner of complex dilemmas. Today, we?re having a conversation about the ethical questions surrounding the case of Charlie Gard . He?s the infant in Britain who died on Friday, a week shy of his first birthday. He was critically ill for all of his short life. He had a rare genetic condition that left him brain damaged and unable to move or breathe on his own. His parents sought permission from UK courts to do what they thought was best for their son. First they wanted to take him to the U.S. for experimental treatment. More recently, his caregivers said that there was nothing more than could be done to help him and that he would die without artificial life support. His parents wanted to take him home from the hospital to die. In both instances, the courts ruled that what the parents wanted was not in the best interest of little Charlie. This sad case reminds

Travis Rieder of the Johns Hopkins Berman Institute of Bioethics describes his experience of opioid withdrawal after a serious accident and outlines a bioethical framework for opioid prescribing. John Renner of Boston University explains how stories like Rieder's fit into the larger picture of opioid use in America, and what must be done to address the educational gap. You can learn more about substance use disorders and medication-assisted treatment at www.psychiatry.org/patients-families/addiction. Information about the Providers' Clinical Support System for Medication Assisted Treatment is at www.pcssmat.org. Funding for this initiative was made possible (in part) by Providers' Clinical Support System for Medication Assisted Treatment (1U79TI026556) from SAMHSA. The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services; nor does mention of trade names, commercial practices, or organizations imply endorsement by the U.S. Government. Music: "Sidecar" by Podington Bear

On today’s episode of More than Meets the IRB, we talk with PRIM&R Executive Director Elisa Hurley about the controversial elements of the NPRM and those which ultimately made it into the final rule. This episode considers challenging questions about the future of research: what might change in how we build policy within the United States? Dr. Elisa Hurley is the Executive Director of Public Responsibility in Medicine and Research. Dr. Hurley holds a PhD in philosophy from Georgetown University and held a Greenwall fellowship in bioethics and health policy at the Johns Hopkins Berman Institute of Bioethics and Georgetown University's Kennedy Institute of Ethics. How Appropriate is the Consent Process? Recent advances in science and research methods have demanded a renewed engagement in the principles that guide ethical research, which Dr. Hurley cites as an occasion to “rethink how we operationalize this basic principle of respect for persons.” This is also an opportunity to engage with the degree to which IRB work is, or can be considered, a “conversation.” One challenge brought on by these advances is the distance—sometimes literal, in the case of remote review boards—they put between the reviewer and the research. One of the advantages of IRBs has always been their ability to locate research within the context of the community in which it takes place to evaluate important ethical questions; this is less the case in the era of big data and biobanking. As Dr. Hurley says, “there aren’t algorithms to answer these questions about ‘is this an ethical study or not,’ or is ‘this a just way of finding your subjects or not.’ The idea was a group of people, who come with different backgrounds and expectations, are going to have a conversation and arrive at judgment.” What is the future of research education? What should it be? The focus then turns to how the public is educated about research and how that needs to change. Identified in particular is the problem wherein many people’s first interaction with research is when they are given a “25-page informed consent document,” which represents an effort to “educate [the subject] and get [him/her] on board all at once.” This is an inadequate model of education, according to Dr. Hurley, and exacerbates already difficult questions of respect for persons. What is needed, according to Dr. Hurley, is a more systematic and widespread commitment to education about research, implemented nationwide, to bring future potential participants and partners in the research endeavor to a level of understanding that enables them to be able to make educated and appropriate decisions about participation in research well before the official informed consent process begins.

Dr. Carrese serves as Chair, Ethics Committee, Johns Hopkins Bayview Medical Center and IRB Chair Johns Hopkins School of Medicine (SOM). He is a graduate of University of Buffalo SOM and has a Masters of Public Health. Dr. Carrese is the inaugural Director of the Program on Ethics in Clinical Practice at the Johns Hopkins Berman Institute of Bioethics and is a nationally recognized educator, researcher, and scholar of medicine and ethics. The learning objectives include: recognize and appreciate the reality of living in a diverse society and the implications of such diversity for clinical practice; review specific examples of encountering diversity in clinical practice that highlight particular challenges and concerns related to differences; and learn an approach for responding to differences and diversity in clinical practice that is ethically sound.

Dr. Carrese serves as Chair, Ethics Committee, Johns Hopkins Bayview Medical Center and IRB Chair Johns Hopkins School of Medicine (SOM). He is a graduate of University of Buffalo SOM and has a Masters of Public Health. Dr. Carrese is the inaugural Director of the Program on Ethics in Clinical Practice at the Johns Hopkins Berman Institute of Bioethics and is a nationally recognized educator, researcher, and scholar of medicine and ethics. The learning objectives include: recognize and appreciate the reality of living in a diverse society and the implications of such diversity for clinical practice; review specific examples of encountering diversity in clinical practice that highlight particular challenges and concerns related to differences; and learn an approach for responding to differences and diversity in clinical practice that is ethically sound.