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With economic uncertainty, rising debt burdens, and a growing share of the world's poorest people living in fragile contexts, the stakes for the upcoming 4th Financing for Development Conference (FfD4) in Seville have never been higher.According to a recent OECD report, the gap between development financing needs and available resources could reach $6.4 trillion by 2030 if the global financing system isn't significantly overhauled.The conference in June present a pivotal opportunity to ignite reform. It's a vital forum where UN members, international institutions, businesses, and civil society come together at the highest level to rethink how we fund global development.In this episode, we dissect the key questions set to shape discussions at FfD4. How can we mobilise the trillions needed to meet the SDGs? How can the global financial architecture be made more inclusive and responsive? And what bold steps must be taken to unlock investment where it's needed most?Development finance experts share insights on multilateral development bank reform, the role of concessional finance, and opportunities to build a more sustainable, equitable future. GuestsSara Pantuliano (host), Chief Executive, ODI GlobalMónica Colomer, Ambassador at Large for Financing for Development, Ministry for Foreign Affairs, European Union and Cooperation, Spain Alvaro Lario, President, International Fund for Agricultural Development (IFAD)Annalisa Prizzon, Principal Research Fellow, ODI Global Related resourcesDevelopment finance needs major overhaul to achieve global goals (OECD report)Financing development at a crossroads: What's at stake and what reforms are needed? (Development Policy Review)ODI Global at the Spring Meetings (resources hub)Are Southern-led MDBs the future of development finance? (Think Change podcast, ODI Global)MDB Insights Spring Meetings 2025 (Newsletter, ODI Global)Unlocking the potential of blended concessional finance: making aid work harder (Event video, ODI Global)Maximising operational effectiveness and impact: key priorities for multilateral development banks (Report, ODI Global)
Heathrow Airport closed after a fire broke out at a single substation in West London - causing a massive power outage.In today's episode we hear about the critical role of electrical substations in our infrastructure from Head of Technical Regulations at the Institution of Engineering and Technology Mark Coles.We also find out about the global impact of the closure of one of London's busiest airports from Principal Research Fellow at University College London's Air Transportation Systems Group, Dr Lynnette Dray. Hosted on Acast. See acast.com/privacy for more information.
In recent years, many Caribbean countries have experienced a staggering influx of sargassum, a type of nuisance seaweed emanating from the Sargasso Sea in the Atlantic Ocean. Beyond just its potent smell, sargassum seaweed is wreaking havoc on coastal ecosystems, fisheries and tourism infrastructure. In this episode, Emily and Matt ask where it has come from, why it has become such a problem and what this means for climate change. They also discuss exciting new technologies from small island nations which, in a bid for a more sustainable future, could see sargassum recycled and redeployed across the globe. Featuring:Emily Wilkinson (host) | RESI Director & Principal Research Fellow at ODI GlobalMatthew Bishop (host) | RESI Director & Senior Lecturer at the University of SheffieldOlivia Losbar | Journalist at Radio Caraïbe International (RCI) GuadeloupeEmma Tompkins | Professor of Environment, Geography and Development at the University of SouthamptonLegena Henry | Lecturer in Renewable Energy at the University of the West Indies and CEO of Rum and Sargassum Inc. Resources:Resilient and Sustainable Islands Initiative (RESI)2nd EU-Caribbean Gateway Conference on SargassumHow sargassum causes chaos in the CaribbeanProfessor Emma TompkinsSustainable Sargassum ManagementRum and Sargassum Inc.Sargassum as an alternative transportation fuel Listen and subscribe to Small Islands Big Picture on: Acast, Apple Podcasts, Amazon Music, Google Podcasts and Spotify Hosted on Acast. See acast.com/privacy for more information.
In this episode, Dr Elle Wadsworth talks to three generations of tobacco/nicotine researchers: Dr Sarah Jackson and Emeritus Professors Martin Jarvis and Robert West, all from the Department of Behavioural Science and Health at University College London. They discuss a recent editorial, ‘The price of a cigarette: 20 minutes of life?' – why the message resonated, what was and is difficult to convey in tobacco research, and how the media coverage has changed for tobacco research over the years. · What the editorial is about [00:56]· Why the editorial resonated with the public and the media [01:40]· What messages were difficult to convey to the public [03:05]· Why the number of ‘20 minutes of life' has increased since the last estimate and why it is longer for women [07:43]· Choosing persuasive pieces and soundbites to communicate to the public [12:13]· The misinterpretation of research in the media and the difficulty in delivering nuance [14:08]· How the media coverage on tobacco and smoking has changed over the years [16:23]Dr Sarah Jackson is a Principal Research Fellow within UCL's Tobacco and Alcohol Research Group. She has authored >100 peer-reviewed articles on nicotine and tobacco. Her research activity focuses primarily on modelling population trends in smoking, evaluating smoking cessation interventions and policies, and advancing the evidence base on vaping. She is President of SRNT Europe, Senior Editor for Addiction, and Social Media Editor for Nicotine & Tobacco Research. Martin Jarvis is Professor Emeritus of Health Psychology at the Department of Behavioural Science and Health, UCL, having for many years worked with Michael Russell's smoking research group at the Institute of Psychiatry and then Cancer Research UK's Health Behaviour Unit. He has researched and published widely on tobacco smoking, with special interests in the role of nicotine, social and family influences on smoking, smoking cessation methods and passive smoking. He was awarded an OBE in 2002.Robert West is Professor Emeritus of Health Psychology at UCL. He specialises in behaviour change and addiction. He is former Editor-in-Chief of Addiction, and has acted as an advisor to the English Department of Health on tobacco control and currently advises the Public Health Wales Behavioural Science Unit. He helped write the blueprint for the UK's national network of stop-smoking clinics and is co-founder of the Capability-Opportunity-Motivation, Behaviour (COM-B) model of behaviour, the Behaviour Change Wheel framework for intervention development, and the PRIME Theory of motivation. Original article: The price of a cigarette: 20 minutes of life? https://doi.org/10.1111/add.16757 Authors praised the seminal work of the late Professor Michael Anthony Hamilton Russell (1932–2009). For further reading on the legacy of his landmark research, see here: https://doi.org/10.1111/add.14043The opinions expressed in this podcast reflect the views of the host and interviewees and do not necessarily represent the opinions or official positions of the SSA or Addiction journal. The SSA does not endorse or guarantee the accuracy of the information in external sources or links and accepts no responsibility or liability for any consequences arising from the use of such information. Hosted on Acast. See acast.com/privacy for more information.
We hear a lot about the role of educators and schools in developing the essential skills students need for learning and for life – things like critical thinking and collaboration. But, it's not necessarily a simple thing to support the development of these things in the classroom. We're delighted to welcome Dr Claire Scoular back to the Teacher podcast today. You may recognise her name – Dr Scoular is a Principal Research Fellow at the Australian Council for Educational Research and she's been working on developing frameworks for the essential skills for learning. The frameworks are designed to support educators to understand the essential skills by defining the skill, breaking it down into aspects that comprise it, and presenting those aspects as observable behaviours. It also identifies different levels of proficiency in the skill. This work has involved collaboration with more than 30 countries around the world to identify and select 5 essential skills. Host: Dominique Russell Guest: Dr Claire Scoular Sponsor: Sora
Associate Professor Adam Culvenor is a Principal Research Fellow from the La Trobe Sport and Exercise Medicine (LASEM) Research Centre, a National Health and Medical Research Council (NHMRC) Emerging Leadership Fellow and the head of the Knee Injury Research Group within LASEM. In this conversation, Adam and I discussed the research he has led on post traumatic knee osteoarthritis including the OPTIKNEE 2022: consensus recommendations, the SUPER-Knee trial, the role of diet in managing osteoarthritis and the Australian Knee Injury Study. Thanks Adam for a great conversation. Use the timestamps below to jump to relevant sections and follow the links below to find out more about Adam and his work. In this episode: 0:00 About this episode and welcome Adam 6:00 The infrapatellar fat pad 8:10 Adam's pathway into research – MRI outcomes after ACL reconstruction 14:45 Cartilage imaging studies leading into the SUPER-Knee trial 19:36 How does strengthening help with cartilage health after knee injury? 24:40 Role of diet in managing osteoarthritis 26:40 OPTIKNEE 2022: consensus recommendations to optimise knee health after traumatic knee injury to prevent osteoarthritis 30:55 Australian Knee Injury Study 35:15 Key takeaways – consider the need for imaging, be guided by the guidelines, get involved in research as a clinician or a student Read more about Adam here: https://scholars.latrobe.edu.au/a2culvenor Be part of the Australian Knee Injury Study: https://www.kneeinjurystudy.com.au/ Adam discussed the OPTIKNEE consensus recommendations following traumatic knee injury: https://bjsm.bmj.com/content/56/24/1393.citation-tools Whittaker JL, Culvenor AG, Juhl CB, et al OPTIKNEE 2022: consensus recommendations to optimise knee health after traumatic knee injury to prevent osteoarthritis. British Journal of Sports Medicine 2022;56:1393-1405. Read more about the SUPER-Knee trial: https://bmjopen.bmj.com/content/13/1/e068279 Stay Connected: Read more at www.Perraton.Physio or the Perraton Physio LinkedIn page. Watch us on YouTube: https://www.youtube.com/@PerratonPhysio Follow @PerratonPhysio on Facebook, X (Twitter), Instagram and Linked In. This discussion is intended for health professionals and health professional students. Always seek guidance from a qualified health professional regarding any questions about your health or medical condition.
Overall trust between racial groups in Singapore and appreciation for diversity have grown. That’s according to a recent study by the Institute of Policy Studies and racial harmony advocacy group OnePeople.sg, which also found a dip in reports of racial discrimination at work across the board compared with the previous study. However, stereotyping went up and an area of concern highlighted was the decline in cross-racial friendships from 2018 to 2024. On this episode of Morning Shot, Dr Mathew Mathews, Head of Social Lab & Principal Research Fellow at the Institute of Policy Studies shares more insights from the study. Presented by: Audrey SiekProduced by: Yeo Kai Ting (ykaiting@sph.com.sg)Photo credits: Gin Tay / STSee omnystudio.com/listener for privacy information.
The Power of Physical Activity in Healthcare with Associate Professor Sjaan GomersallAssociate Professor Sjaan Gomersall takes us on a captivating journey from the world of ballet dancing to becoming an influential figure in physiotherapy and health promotion. As the Associate Director and Principal Research Fellow at the Health and Wellbeing Centre for Research Innovation—cofounded with The University of Queensland and Health and Wellbeing Queensland—Sjaan has dedicated her career to integrating physical activity into healthcare. She is also an Associate Professor in Physiotherapy at the School of Health and Rehabilitation Sciences, The University of Queensland, and serves as the President of the International Society for Physical Activity and Health.In this episode, we explore her unique path, shaped by her family's experiences with disabilities and a serendipitous academic decision that led her to specialise in physical activity measurement. Her inspiring transition from clinical practice to academia highlights her commitment to promoting exercise as a preventive strategy rather than just a treatment tool.We dive into the evolving role of physical activity in healthcare, discussing key challenges faced by health professionals, such as time constraints and the difficulty of maintaining their own healthy habits. Sjaan shares insights on the critical differences between therapeutic exercise prescriptions and general physical activity promotion, emphasising the importance of starting small and leveraging behavior change strategies for long-term success.The impact of social support and technology on fitness behavior is another key topic. From the communal energy of group workouts to the influence of wearable technology and e-health interventions, we examine how these factors shape our exercise habits. Sjaan also provides her perspective on the potential of these technologies to reach underserved populations and foster meaningful connections.As Co-Chair of the Physical Activity in Healthcare Special Interest Group (Asia-Pacific Society for Physical Activity) and a Consultant for the World Health Organization's Physical Activity Unit, Sjaan offers invaluable insights into the integration of physical activity in healthcare consultations. We discuss the need for a cohesive approach that prioritises exercise as a vital component of patient care.Join us for an enlightening discussion that will change the way you think about exercise, health promotion, and the role of physical activity in shaping a healthier future.
Our new Donors in a Post-Aid World (DPAW) dialogue series provides an informal space for reimagining the functions of Northern bilateral donors in an evolving global landscape. Last month, our first dialogue focused on creating a new narrative for Northern ‘donorship,' identifying opportunities for a refreshed approach to development cooperation.This episode discusses key takeaways from the first dialogue. Guests examine the challenges Northern donor institutions face in a post-aid world, and how they might redefine their roles for the future.Why does this matter? Today, Official Development Assistance (ODA) is expected to address a growing array of complex agendas: countering China, managing migration, tackling the climate crisis, and more.As demands grow for concessional public finance, donors lack the scaffolding of a single 'story' that they once had. What's more, as the lines between ‘developed' and ‘developing' countries blur, and the donor-recipient model of aid as charity is increasingly rejected, the traditional rationale for aid has reached its limits.In this episode, guests discuss how to navigate these challenges and build momentum for reforms that could influence key global policy processes.GuestsSara Pantuliano (host), Chief Executive, ODI GlobalNilima Gulrajani, Principal Research Fellow, ODI GlobalHeba Aly, former CEO of The New HumanitarianFadhel Kaboub, Senior Advisor, Power Shift AfricaOmar Bargawi, Deputy Director and Head of the Development Policy & Partnerships Department, FCDOEngage with usWe want to hear from voices that do not get heard yet have deep insights and knowledge to reimagine donorship for the 21st century. Please do reach out to Nilima Gulrajani if you have any ideas or would like to write for us.The second dialogue will take place early in 2025, with four to take place over the next 18 months. Sign up to our Donors in a Post-Aid World newsletter to get updates about the dialogue series. Related resourcesDonors in a Post-Aid World (Project, ODI Global)Should a Northern donor exist in the 21st century? Introducing a new dialogue series (Insight, ODI Global)Donors In A Post-Aid World – January 2024 update (Insight, ODI Global)Crafting development power: evolving European approaches in an age of polycrisis (Report, ODI Global)Boosting gender equality with finance and fiscal policy (Project, ODI Global)Have your say on Think ChangeWe'd love to get your feedback on the show so we can continue to improve and grow it. Please take this 5 minute survey.
In this episode, Emily and Matt try to find out why it has blazed such a successful trail, what reforms might ultimately result from it, and where SIDS fit into the process. Featuring:Emily Wilkinson (host) | RESI Director and Principal Research Fellow at ODI GlobalMatthew Bishop (host) | RESI Director and Senior Lecturer at the University of SheffieldAlicia Nicholls | Trade Policy Expert from BarbadosMichael Jacobs | Professor of Political Economy, University of Sheffield, and Visiting Senior Fellow, ODI GlobalPep Bardouille | Director of the Bridgetown Initiative and Special Adviser on Climate Resilience, Barbados Prime Minister's Office Resources:Programme page | Resilient and Sustainable Islands Initiative (RESI)Official website | The Bridgetown Initiative 3.0Michael's recent ODI Piece | The New Development and Climate Finance AgendaMichael's accompanying report|International development and climate finance: the new agendaOur forthcoming book | Sustaining Development in Small IslandsOur report on loss and damage | The price of a changing climate: extreme weather and economic loss and damage in SIDSOur report on poverty | Islands at the Edge: How climate shocks shape poverty in SIDSOur Conversation Piece | Extreme weather has already cost vulnerable island nations US$141 billion—or about US$2,000 per personRESI Brochure | Towards a New Knowledge Architecture for SIDSOur T20 policy brief | Financing Resilient Prosperity in SIDSAnother T20 policy brief by our friends in Barbados | An Inclusive Agenda for SIDS at the G20 Hosted on Acast. See acast.com/privacy for more information.
In this episode of "Small Islands, Big Picture", Emily and Matt try to make sense of this phenomenon by asking where these initiatives have come from, who is leading them, and why they are gathering steam. Featuring:Emily Wilkinson (host) | RESI Director and Principal Research Fellow at ODIMatthew Bishop (host) | RESI Director and Senior Lecturer at the University of SheffieldRosie MacInnes | Carbon Neutral Development Officer, Carbon Neutral Islands Project, Government of Scotland and Director of Raasay Community RenewablesAnne-Sophie Vivier | Legal Adviser, Pacific and Global Engagement Manager, Vanuatu Climate Justice ProgramKate McKenzie | CEO, Climate Change Legal Initiative (C2LI)Zachary Phillips | Crown Counsel, Attorney General's Office and Head of International Law Unit, Government of Antigua and BarbudaFrancesco Sindico | Professor of International Law, University of Strathclyde, and Co-Director of C2LI Resources:Programme page | Resilient and Sustainable Islands Initiative (RESI)International Court of Justice Case Webpage | Advisory Opinion on the Obligation of States in Respect of Climate ChangeOur Conversation piece | Why a chain of tiny Pacific islands wants an international court opinion on responsibility for the climate crisisGovernment of Scotland | Carbon Neutral Islands ProjectC2LI Website | Climate Change Legal InitiativeKate and Francesco's Book | Research Handbook on Climate Change LitigationRESI Brochure | Towards a New Knowledge Architecture for SIDSOur T20 policy brief | Financing Resilient Prosperity in SIDS Hosted on Acast. See acast.com/privacy for more information.
As thousands in the medical technology sector headed to Toronto, Canada for The MedTech 2024 Conference, MTPConnect was making sure that the 18 companies and organisations joining the Australian delegation were given opportunities to showcase their capabilities and make valuable US and international connections with a stopover in the medtech hub of Minnesota, before hitting Toronto.In this podcast special from North America, our MTPConnect CEO Stuart Dignam caught up with Kylle Jordan from Destination Medical Centre at the Mayo Clinic campus in Rochester Minnesota ahead of the Medtech conference to find out more about the 20-year initiative underway to expand the hospital precinct as a global medical care destination.Then it was on to the three-day MedTech Conference. MTPConnect signed an MoU with Medical Alley and Stuart talks with their new president and CEO Roberta Dressen about working together to foster global partnerships in health technology.Stuart was on the ground at the Australian Pavilion and caught up with some of Australia's medtech movers and shakers including iYarn's Founder and CEO Lockie Cooke, University of Melbourne's Principal Research Fellow, Optometry and Vision Sciences, A/Prof Lauren Ayton, Materia Health's Founder, Dr Emily Zhen as well as the delegation's major supporter, Global Victoria's Carolin McCaffrey. The Team Australia delegation was supported by our major sponsor the Victorian Government, through Global Victoria and Invest Victoria, as well as support from NSW Health and AusBiotech.
Send us a textIntroducing our new, longer form podcast, Physio Discussed, where 2 expert guests and our host explore everything you need to know about your favourite topics!In this episode, we discuss:The Physiotherapist's role in discussing both surgical and non-surgical options with the patientEarly surgery vs delayed surgeryCross-bracing protocol for non-operative ACL managementHow to have the conversation of treatment options for patientsWhat type of meniscal tears (in the presence of ACL Injury) are recommended for surgery vs non-surgical managementOsteoarthritis in surgical vs non-surgical managementReturn to sport post ACL injuryWant to learn more about non-surgical ACL Rehabilitation? Kieran recently did a brilliant Masterclass with us, called “Non-surgical Management of ACL Tears" where he goes into further depth on this topic.
We scroll through tons of information everyday, but most of us do not always consciously go through them. But with the proliferation of digital media platforms, media literacy has grown in importance in the 21st century. Just recently, a survey by global market research firm Milieu Insight found that almost four in five Singapore students aged below 18 believe that their schools should include media literacy classes in the curriculum, and are mixed on current efforts such as games. On this episode of Morning Shot, Dr Carol Soon, Principal Research Fellow at the Institute of Policy Studies and Vice Chair of the Media Literacy Council shares her insights on how we can better discern the information we're seeing online, and what can be done to build an eye for fake news. Presented by: Emaad Akhtar Produced & Edited by: Yeo Kai Ting (ykaiting@sph.com.sg)Photo credits: UC Davis College of EngineeringSee omnystudio.com/listener for privacy information.
Bouncing Back: The Personal Resilience Science Insights Podcast
Welcome to another episode of Bouncing Back: The Personal Resilience Science Insights Podcast! In this episode, our host, Joahanna Wickramaratne, dives deep into the world of financial wellbeing. Get ready to uncover the secrets of building financial resilience with our esteemed guest, Professor Roslyn Russell. This conversation promises to equip you with invaluable insights to strengthen your financial footing and thrive even in challenging times. Professor Roslyn Russell is a leading expert in the field of financial wellbeing, boasting over two decades of research experience. As a Professor and Principal Research Fellow at RMIT University's School of Economics, Finance and Marketing, Ros has dedicated her career to understanding and enhancing financial capabilities in Australia. In this episode, Prof. Roslyn Russell sheds light on the pivotal role of financial education in bolstering personal resilience. She discusses how a strong financial foundation can empower individuals to manage unexpected financial challenges effectively. Moreover, Prof. Roslyn Russell explores the delicate balance between saving for the future and enjoying the present, offering practical advice on maintaining financial resilience without sacrificing life's pleasures. Additionally, the episode delves into the most common financial stressors and how they can be managed to protect one's resilience. Prof. Roslyn Russell shares her recommended financial planning strategies and tools that can enhance long-term financial stability and how financial mindfulness can be important in fostering a healthy relationship with money and ensuring lasting financial wellbeing. Follow Prof. Roslyn Russell's work at https://orcid.org/0000-0003-0578-8119 and https://www.linkedin.com/in/roslyn-russell-55143b48/ Produced by the Personal Resilience Science Labs, a division of LMSL, the Life Management Science Labs. Explore LMSL at https://lifemanagementsciencelabs.com/ and visit http://pr.lmsl.net/ for additional information about Personal Resilience Science Labs. Follow us on Social Media to stay updated: YouTube: https://www.youtube.com/channel/UCv1pZy9W9aew6CUK12OeSSQ Facebook: https://www.facebook.com/personal.resilience.science.labs Instagram: https://www.instagram.com/resilience.science.labs/ LinkedIn: https://www.linkedin.com/showcase/personal-resilience-science-labs/ Twitter: https://twitter.com/PRScienceLabs TikTok: https://www.tiktok.com/@resilience.science.labs Pinterest: https://www.pinterest.com/resiliencesciencelabs/ You can also subscribe and listen to the show on your preferred podcasting platforms: Apple Podcasts: https://podcasts.apple.com/us/podcast/bouncing-back-the-personal-resilience-science/id1649518468 Spotify: https://open.spotify.com/show/48GknFUDXjMsdisT6nRDh2 Amazon: https://music.amazon.com/podcasts/9d79c724-902a-4777-ab4a-b31968806798/bouncing-back-the-personal-resilience-science-insights-podcast iHeart Radio: https://www.iheart.com/podcast/338-bouncing-back-the-personal-102890036/ Podbean: https://thepersonalresilienceinsights.podbean.com/ PlayerFM: https://player.fm/series/3402362 Podchaser: https://www.podchaser.com/podcasts/bouncing-back-the-personal-res-4930612
Michael and Rachel speak with Ada Cheung, Principal Research Fellow in Endocrinology Medicine at Austin Health about how hormones impact, and form part of prostate cancer treatment. We spoke with John and Bryan earlier this year about Prostate Pride - listen here You can connect with Prostate Pride here This week's podcast image supplied by Canva Premium This episode was recorded on the lands of the Yalukut Weelam clan of the Boon Wurrung peoples. We pay our respects to their elders, past, present and emerging, and acknowledge that sovereignty was never ceded. This episode originally aired Thursday, September 5 2024 on JOY. Check out our other JOY Podcasts for more on LGBTIQ+ health and wellbeing. If there's something you'd like us to explore on the show, send through ideas or questions to wellwellwell@joy.org.au Find out more about LGBTIQ+ services and events in Victoria at Thorne Harbour Health and in South Australia at SAMESH
Introducing our new, longer form podcast, Physio Discussed, where 2 expert guests and our host explore everything you need to know about your favourite topics!In this episode we dive deep into hip pain and hip osteoarthritis. We discuss: When can you consider pharmacological treatments in a patent with early hip OA/OA.What role does hip morphology play when considering treatment optionsWill all patients with FAI syndrome and hip dysplasia develop hip osteoarthritis? Does exercise have a role in treating hip pain in younger people, if pain is coming from structural things like labral or cartilage tears? How can exercise work in this scenario? Why would you choose exercise over surgery?What is the evidence for exercise and does this type of exercise matter?Are there other things alongside exercise that are important? - exercise different in younger people than older people with hip OA?Want to learn more about hip osteoarthritis? Dr Jo Kemp has done a brilliant Masterclass with us called, “Hip Osteoarthritis: Optimising your Assessment and Treatment” where she goes into further depth on all things assessment and treatment of hip osteoarthritis.
Richard was 10 when he started smoking, and by the age of 35, he had given up on giving up smoking. But thanks to vaping he quit, almost by accident, in just a few months. However, vaping has been in the spotlight recently, with the rise of disposable vapes and awareness of more young people starting to vape. So, is vaping a useful tool to help people get off of cigarettes, or is it a gateway for young people into smoking? We hear from young people about their experiences and thoughts on vaping. In the studio, Dr Sarah Jackson, Principal Research Fellow at UCL Alcohol and Tobacco Research Group, and Hazel Cheeseman, Deputy Chief Executive of ‘Action on Smoking and Health', are with James to discuss. Plus, podiatrist Dr Ivan Bristow is on hand to advise why James and listener Linda have had a hard time getting rid of their verrucas for years. We find out exactly what the warts are and what options are available to help our body tackle them. Presenter: James Gallagher Producer: Hannah Fisher Assistant producer: Katie Tomsett
In this episode, we discuss effective strategies to form healthy habits, how to use coping plans, the 'windows of opportunity' to make health behaviours stick and how healthcare practitioners can change their own habits. Dr. Dominika Kwasnicka is a Behavioural Scientist and Principal Research Fellow at the University of Melbourne. Dom is a highly influential researcher in sustainable behaviour change in both laypeople and healthcare practitioners. Chapters 0:00 Show Intro 4:30 Implementation Intentions 15:30 Habit Formation 24:00 The Role of Willpower 29:30 Changing Healthcare Practitioners' Behaviours Show Notes Practical Health Psychology Blog https://practicalhealthpsychology.com/ Implementation Intentions and Goal Achievement: A meta-analysis of effects and processes by Gollwitzer and Sheeran (2006) Self-Determination Theory and the Facilitation of Intrinsic Motivation, Social Development, and Well-Being by Ryan and Deci (2000) Does planning how to cope with anticipated barriers facilitate health-related behaviour change? A systematic review by Kwasnicka et al. (2013) A gender-sensitised weight-loss and healthy living program for men with overweight and obesity in Australian Football League settings (Aussie-FIT): A pilot randomised controlled trial by Kwasnicka et al. (2020) Challenging assumptions underlying physical activity promotion for health care professionals in Australia: A data-prompted interview study by Kwasnicka et al. (2023)
In May 2024, the Fourth International Conference on Small Island Developing States (SIDS4) took place in Antigua, where leaders agreed the next ten-year roadmap for Small Island Developing States (SIDS), the “Antigua and Barbuda Agenda for SIDS: A Renewed Agenda for Resilient Prosperity (ABAS)”.In this episode, Emily and Matt review the conference, bringing to life the event's atmosphere, discussing key highlights, and – crucially – asking “What now needs to happen for the ABAS to be successful over the next decade?”.In “Island Voices”, Naya Sena provides a civil society perspective on SIDS4. In the “Explainer”, Margot St John-Sebastian talks through the negotiating process that produced the ABAS. In “The Big Picture”, Sai Navoti, Rebecca Fabrizi and Tumasie Blair reflect separately on their conference highlights.Featuring:Emily Wilkinson (host) | RESI Director and Principal Research Fellow at ODIMatthew Bishop (host) | RESI Director and Senior Lecturer at the University of SheffieldNaya Sena | Researcher, Atmosphere and Ocean Research Institute, University of TokyoMargot St John-Sebastian | Lead Negotiator, AOSISSai Navoti | Chief of the SIDS Unit, UNDESARebecca Fabrizi | UK Small Island Developing States (SIDS) Envoy and Head of the Caribbean and SIDS Department at FCDOTumasie Blair | Deputy Permanent Representative of Antigua and Barbuda to the UNResourcesProgramme page | Resilient and Sustainable Islands Initiative (RESI)SIDS4 Communiqué | The Antigua and Barbuda Agenda for SIDS (ABAS) – A Renewed Declaration for Resilient ProsperitySIDS4 Policy brief | A global bargain for resilient prosperity in SIDSFuture Forum Report | Shaping the Future of Small Island Developing StatesGlobal Voices piece | Why small islands need their own Marshall PlanRESI Debt Project | Breaking the Cycle of Debt in SIDSConversation piece | Debt-disaster-debt: hurricane-damaged islands are being saddled with loans they cannot affordGuardian piece | Caribbean leaders call for ‘Marshall plan' to help rebuild after Hurricane Beryl Hosted on Acast. See acast.com/privacy for more information.
Professor Leonie Barner, serving as the Principal Research Fellow at Queensland University of Technology, and Dr. Kavita Gonsalves, the Sustainability Design Lead at Populous, have come together on the Think.Future podcast to narrate their collaborative journey concerning Building 4.0 CRC and the CommBank Stadium in Parramatta, NSW, Australia. The discussion revolves around the Populous-designed stadium, a LEED Gold-certified structure boasting a seating capacity of 30,000, which stands as a striking example of circular architecture. Circular design, stemming from the principles of the Circular Economy, is highlighted as an ethos striving to maintain building materials in constant circulation to minimize waste, pollution, and uphold biodiversity (per the Ellen Macarthur Foundation). Tune in to unravel the innovative essence of the CommBank Stadium and the valuable circular design insights shaping the future of architecture and design landscapes.
In recent years, the notion of the “Blue Economy” has gained traction in Small Island Developing States (SIDS) policy debates. Focusing on the often-enormous marine spaces encompassed in SIDS' exclusive economic zones (EEZs) – rather than their diminutive terrestrial landmasses – implies SIDS are really “large ocean states” rather than “small island states”. For proponents, the “Blue Economy” represents an entirely new way of thinking that offers a host of novel economic opportunities. For critics, it is little more than a buzzword that potentially “bluewashes” familiar forms of resource enclosure and extraction. In this episode of "Small Islands Big Picture", Emily and Matt try to chart a path between these two positions, asking “What is new – and blue – about the Blue Economy discourse? Why have some SIDS and international organisations embraced it so enthusiastically? Are there dangers in advocating for and pursuing it? And how it might be deployed to generate wealth through conservation, rather than exploitation of oceanic resources?”. In “Island Voices” we hear from Karuna Rana of the Big Ocean States Initiative in Mauritius who advocates using blue innovation to support community development. For our “Explainer”, Liam Saddington of Cambridge University demystifies the Blue Economy concept and discusses some of his research in the Seychelles. The “Big Picture” welcomes Nicole Leotaud from the Caribbean Natural Resources Institute (CANARI) in Trinidad and Tobago to hear how civil society visions of socially and ecologically sound “blueing” are being advanced. Finally, in “No Stupid Questions”, Matt and Emily ask, “Is the Blue Economy really that novel, or just old wine in new bottles?”.Featuring:Emily Wilkinson (host) | RESI Director and Principal Research Fellow at ODIMatthew Bishop (host) | RESI Director and Senior Lecturer at the University of SheffieldKaruna Rana | Director, Big Ocean States Initiative (BOSI)Liam Saddington | Teaching Associate, University of CambridgeNicole Leotaud | Director, Caribbean Natural Resources Institute (CANARI) Resources:Programme page | Resilient and Sustainable Islands Initiative (RESI)Karuna's Future Forum Paper | Closing the blue funding gap: How can SIDS mobilise a blue innovation fund for community development?Liam's Geoforum Paper | Geopolitical imaginaries in climate and ocean governance: Seychelles and the Blue EconomyCANARI's SIDS4 Report | The Caribbean we want: Civil Society recommendations for transformative pathways to Caribbean sustainable development Hosted on Acast. See acast.com/privacy for more information.
Dr. Joanne Kemp is a Sports Physiotherapist, Principal Research Fellow, & Associate Professor at Latrobe Sport & Exercise Medicine Research Centre in Australia. She publishes research on hip osteoarthritis and femoroacetabular impingement and is also an editor for the British Journal of Sports Medicine. Enjoy! -------Become a better physiotherapist with Physio Network's Masterclass video courses. Use this link and enter the code "Noah10" for an exclusive 10% off on Masterclass:Masterclass Video Courses - Physio Network (physio-network.com)------Jo's Twitter------Noah's InstagramFor questions and business inquiries: noahmandelphysio@gmail.com
This week on the podcast Monique interviews the incredible Associate Professor Josephine Barbaro. Josie is a late identified Autistic ADHDer. She is a Principal Research Fellow and Psychologist at the Olga Tennison Autism Research Centre, La Trobe University, Melbourne. She is the Research Director of Identification and Diagnosis of Autism, and Clinical Director of the Victorian Early Assessment Clinic, providing neuro-affirming, transdisciplinary assessments for neurodivergence in children under 3 years. Josie's research interests are in the early identification and diagnosis of Autism, family health and well-being following a diagnosis, and Neurodiversity Affirming research and practice. In this episode Monique and Josie cover: Josie's path to understanding her own neurodivergence. The heritability of neurodivergence and the importance of taking a whole-family approach to supporting neurodivergent kids. Josie's work on early identification of Autism and the development of the SACS early identification screening tool and the ASDectect app. Josie's research and work into closing the gender gap in early diagnosis of Autism. Why early identification is so important and addressing concerns parents can have around ‘labelling'. How to share a diagnosis of Autism with your child. Debunking the myths around overdiagnosis of Autism. Things we mentioned: The Victorian Early Assessment Clinic. The SACS early identification screening tool training The ASDectect app Conversation article co-written by Josie and Marie Camin on talking to your child about their diagnosis. Conversation article co-written by Josie and Dr Nancy Sadka debunking the myth around overdiagnosis of Autism. Books to use as a conversation starter to introduce neurodivergence to a child include The Brain Forest and The Rainbow Brain, both by Sandyha Menon, and Round World Square Me by Chelsea Luker. You can contact Josie via email at veac@latrobe.edu.au or find her on her socials here. Want polished copies of our episodes in beautiful and readable pdf article format? Grab them here. Enjoyed the episode and want to support us further? Join our Patreon community! Patreon subscribers receive basic episode transcripts from Season 4 onwards, access to a monthly live zoom hang out, 50% off our episode articles, plus bonus monthly content (depending on subscription tier). Check out our Patreon page to support us, as we aim to make quality mental health care information accessible to everyone: www.patreon.com/ndwomanpod. See omnystudio.com/listener for privacy information.
Hello Listeners! We have a great episode today with two guests - Han Li, PhD, AIAA, and Associate Professor at The University of Melbourne, and we also have Timothy Adair, PhD, and Principal Research Fellow at The University of Melbourne. And today we are talking about the Society of Actuaries Research Institute report “Modeling and Forecasting Premature Cardiovascular Mortality: The Role of Obesity and Education.” Listen and learn about the role of obesity and education level in determining age-gender-specific premature CVD mortality. Landing Page: https://www.soa.org/resources/research-reports/2024/modeling-premature-cardiovascular-mortality/ Send us your feedback at ResearchInsights@soa.org
Global public debt is at unprecedented levels. The UN has reported that nearly half of the world's population lives in countries that spend more paying off debts to other countries than they spend on healthcare for their own people.While needs soar as countries try to address the impact of the poly-crisis and invest significantly to transform their economies and societies, economic growth is in sharp retreat in many nations in the Global South.The World Bank is calling for donor governments to step up. They have put ‘IDA replenishment' top of the agenda at this month's Spring Meetings in Washington, D.C.But why is the World Bank calling for this record replenishment? Join us as we explore the case for the IDA to become more effective and efficient at a time of soaring needs.GuestsSara Pantuliano (host), Chief Executive, ODIAnnalisa Prizzon, Principal Research Fellow, ODISeynabou Sakho, Director of Strategy and Operations for the World Bank Office of the Managing Director of OperationsGregory Chen, MD of Ultra-Poor Graduation Initiative, BRAC InternationalRelated resourcesODI on multilateral development banksODI Day at the 2024 Spring Meetings Bigger, but also better: why MDB reform must go further (ODI blog)One year on, the World Bank must focus on how to implement its Evolution Roadmap (ODI blog)Matching finance to need (Davos 2024 event video)Strengthening MDBs: the triple agenda (Annual Meetings 2023 event video)What do borrowing countries think of MDB reform? (Think Change podcast)
There are a range of outcomes from a genomic test. The results might provide a diagnosis, there may be a variant of uncertain significance, where a genetic variant is likely the cause of the condition, or there might be no particular gene found that is linked to the phenotype or clinical condition - also known as a "no primary finding" result. In this episode, our guests explore the impact of a "no primary finding" result on families, discussing the common experiences and expectations of parents and patients who undergo that genetic testing, and the role that hope plays in the experiences of children with rare and undiagnosed conditions. Today's host, Lisa Beaton, member of the Participant Panel at Genomics England is joined by Dr Celine Lewis, Principal Research Fellow in Genomics at UCL, Great Ormond Street Institute of Child Health, Jana Gurasashvili, a Genetic Counsellor, and Louise Fish, CEO of Genetic Alliance. "I think it's also really important to add that hope isn't necessarily lost when you don't get a diagnostic result. And in a sense, what can be really helpful is for genetic counsellors to reframe that hope...sort of giving it a different context." For more information on the SWAN UK project which supports families with children that have been through genetic testing but have not found a result following that genetic testing, visit the website. Read more about the study by Jana Gurasashvili and Dr Celine Lewis: The disequilibrium of hope: a grounded theory analysis of parents' experiences of receiving a "no primary finding" result from genome sequencing. You can read the transcript below or down it here: https://files.genomicsengland.co.uk/documents/Podcast-transcripts/Hope-for-those-with-no-primary-findings.docx Lisa: Hello, welcome to the G Word. Lisa: I think in the back of my mind, subconsciously, I had hoped that when we eventually got a diagnosis, it would – I don't know, bells and whistles, balloons going off, fireworks, etc. And then the experience of a letter thumping on the doormat, and I recognised the postmark quite quickly, and it was at that moment I suddenly thought, “Oh gosh, I haven't buried all these feelings of hope.” Because I opened that letter with quite trembly hands, and then this diagnosis or lack of diagnosis, you know, nothing had been found, and it was a bit… I don't know if it's been described as like a nail in the coffin experience, because I really hadn't realised I was still clinging to this hope all that time, and then again it was, you know, another, “No, nothing's there. Lisa: My name is Lisa Beaton and I'm a member of the participant panel at Genomics England. On today's episode, I'm joined by Dr Celine Lewis, the principal research fellow in Genomics at UCL, Great Ormond Street Institute of Child Health, Jana Gurasashvili, a genetic counsellor, and Louise Fish, the CEO of Genetic Alliance. Today we'll be discussing the impact on parents with children with rare conditions, who received a no primary findings result after diagnostic whole genome sequencing. If you enjoy today's episode, we'd love your support. Please like, share and rate us on wherever you listen to your podcasts. Can I ask all of us here present to introduce themselves, please? Celine: Hi everyone, I'm Celine, I'm a behavioural scientist in genomics at UCL Institute of Child Health, and I currently hold an NAHR advanced fellowship to look at the implementation of WGS, or whole genome sequencing, in the NHS. Jana: I'm Jana Gurasashvili and I'm a genetic counsellor at Northwest Thames Regional Genetic Service, and prior to that I was at Great Ormond Street, involved with consenting families to the 100,000 Genomes Project, and I also have an ongoing interest in the lived experience of patients and parents of genetic counselling and rare disease. Louise: Hi, I'm Louise Fish, I'm the chief executive of Genetic Alliance UK, and we are an alliance of around 230 charities and support groups that work with patients and families who have particular rare conditions. We also run a really longstanding project called SWAN UK, and SWAN stands for syndromes without a name. And the SWAN UK project supports families with children that have been through genetic testing but have not found a result following that genetic testing. So, it's clear they have a genetic condition, but science hasn't quite advanced far enough yet to tell us what that means and what that will mean for their child, and what that will mean for their family over the coming years. Lisa: And I personally can attest to the wonderful support that SWAN UK can offer because, as the parent of a still undiagnosed child, I have been involved myself with SWAN UK since my daughter was around the age of three to four years old. It's brilliant being a part of my big SWAN UK family. We first realised that there were some – I suppose something wrong with our daughter when she was around two weeks of age, but it wasn't something I could specifically put my finger on. I couldn't at that point have taken her to a doctor and said, “I don't know what's wrong but there's something wrong.” I just knew in my heart of hearts, probably because I have three elder children, that there were issues, and things weren't developing as they should. She cried a lot, she screamed a lot, she never seemed to be comfortable in any position when you held her, when she was asleep, when she was upright. It didn't seem to matter what you did, she was just a rigid, stuck child, for want of a better word. And all my mum senses were screaming, but it completely sounded ridiculous to take her to a doctor saying, “She feels wrong.” And I think that's quite a SWAN UK experience, from chatting to other families with similar situations. The parents just know that there's something not right, but it can be very isolating not to be able to identify kind of where that starts and what it is. In our case, it wasn't until our daughter was nine weeks old that things became much more obvious, that there were developmental concerns physically and medically, and at that point we went from my sort of mutterings that there was something wrong but I wasn't sure what it was, to a sudden hospital admission with quite a shocking turn of events. From something that had started out quite normally, as a routine visit to the baby clinic, to suddenly being seen by a troop of different paediatricians, and doctors coming in and out constantly, asking different questions, and sending us off all over the building for different tests and x-rays and imaging. And being given a partial diagnosis that our daughter had a condition called arthrogryposis, but it was clear that there was much more going on than that, and we would need referring to many more different fields. And that day really our diagnostic odyssey, for want of a better word, began. So actually, in terms of that diagnostic odyssey, many parents of children with rare undiagnosed conditions experience this, and when we agree to have genetic testing, we feel that we are going to get these answers straight away, and that every appointment that you go along to is going to be the one that brings you the answers. But certainly in our experience kind of 15 years on, that's not been the story at all. Celine, can I ask you to explain what the words no primary findings actually mean when a parent receives that regarding their child? Celine: So, there's a range of different possible outcomes from a genomic test. So, the results might provide a diagnosis to that patient and family, or other situations, there might be a variant of uncertain significance, so we don't necessarily know if the gene that we found, a genetic variant is the likely cause of the condition, or we might find no particular gene at all that we think is linked to the child's phenotype or clinical condition. So, that's what we mean really when we're sort of saying no primary finding. Lisa: Louise, would you be kind enough to explain what you think the impact of no primary findings means to families like my own, parents who don't have a genetic likelihood cause, just a gene thrown up to diagnose their child? Louise: Yeah, I think it's a huge challenge for families, and you'll obviously know that from your own experience. People go to have genetic testing hoping it will give them some answers, first and foremost, just to kind of understand, you know, what condition their child has and what the likely impact that's going to be on their child and on the child's life, and on the family's wider life. And I think one of the things that we really ask genetic counsellors and geneticists to do is help people understand before the genetic testing takes place that there may be nothing found from it, so that that kind of expectation is built in. Because people hope that they will get a diagnosis that will give them answers about what the impact of the condition will be on their lives. In a best-case scenario, access to a particular treatment that might be a huge help for their child, but at the very least, access to a range of services and support for their child. So, that kind of diagnosis is often seen by families as the key to unlocking a range of services and support that will help them and their families at what is the beginning of a lifelong journey. And I think when families get no diagnosis, there's a real concern on behalf of families, a, that they don't understand how their child's going to be affected by the condition. What we're really careful to say to families is, “Just ‘cos you don't have a diagnosis with a name, your child is still the same person they were before. They still have exactly the same bundle of needs as they had before, and you will still need to work with the NHS and with wider services to make sure that they can access speech and language therapy, and physiotherapy, and all of the services that they are going to need and you are going to need to help them live their lives to the full.” But I think that moment of not getting a diagnosis is when people feel I think real – the uncertainty continues, and uncertainty, we know, is a really hard thing to live with, and the lack of clarity about which services you'll be able to access. So, I think psychologically it's a massive impact on the family not to have the answers that they were looking for, or the key to the services that they were hoping would be there. Lisa: Thank you, Louise, yeah, I would definitely agree with that. We had a no primary findings result in I think it was 2019. It was a really bittersweet moment because my daughter's list of various different conditions kind of – by this point, named parts of difficulties for her spans over sort of two pages of A4, and yet on the letter back from the genomics service, it just says that, you know, nothing causative has been found. And so part of you is left wondering, well, how can there be all these different conditions or difficulties, and yet there's still nothing there? And I know personally, I had comments when she was much younger, every time a test came back, where people would say things like, “Oh well, that's great news,” and to some extent it was great news that something hadn't been found, but also if that hadn't been found, what was still out there? And that fear of kind of the unknown was extremely difficult. And also paradoxically, there was a sense of some very well meaning people saying things like, “Oh well, if they haven't found anything then there can't be too much wrong.” But yeah, I have a child who is tube fed and on multiple different medications, and cared for basically for 24 hours a day, so that doesn't really fit in with the picture of there not being very much wrong from a personal perspective. And I think it can make you as a parent/carer feel perhaps there's a tendency to downplay that there is an issue and that perhaps, you know, you're making it up, for want of a better word, and that sense of isolation around that can certainly be problematic. Celine, if I can come to you, that diagnostic odyssey, what are the common experiences and expectations of parents and patients who undergo that genetic testing from your perspective? Celine: Well, I think sort of parents go into genetics testing for a whole range of reasons really, and Louise has already alluded to many of these. Ones that I've come across in my own work include wanting to know why their child has a particular health problem, so that that child can access the most suitable treatments or therapies, or even access clinical trials. Even relief from guilt for many parents, a validation that the parents hadn't done anything wrong during their pregnancy to cause the child's condition, and that's hugely important really, to try and get that relief from guilt. Also to know whether future children might be affected by the same condition, and then more social reasons really, for example, making contact with other parents through support groups, or access to social and educational support. And I think there's also a drive from many parents to feel that they're doing everything absolutely possible for their child. I mean, particularly with something like the 100,000 Genomes Project, it was really a sort of first of its kind project, where patients were on a significant scale able to access this new whole genome sequencing technology. So, many of the parents taking part in that project felt like pioneers, and there was really a lot of expectations around whole genome sequencing in delivering a diagnosis for those parents who'd previously not been able to get hold of one. Lisa: Yes, I strongly can resonate with a number of the points you made there, particularly the feelings of guilt. I must have asked myself a thousand times whether, you know, something I did do, something I didn't do, something I thought of, something I hadn't thought of [laughter], all those questions that swirl around, particularly in the small hours of the night when you feel particularly alone. And yes, I can completely relate to that. And also although SWAN UK is primarily for children and parent/carers whose children don't have a diagnosis, actually a number of the parent/carers on there will have children with diagnoses that are so very rare that absolutely, you know, very, very little is known. They might be the only parent – the diagnosis, for want of a better word, they may have received may just be a series of kind of numbers and genetic dot-dashes, forgive my layman's terms there, but it may not actually help them any further along in terms of feeling that they know anything further or the direction of, you know, where that will lead their children, and that can feel very, very isolating, I'm sure, probably just as much for those of us who don't have that diagnosis. Louise: Yeah, just to add to that, I think that's absolutely right, Lisa, and I just want to give a shoutout – at SWAN UK, we tend to support families who don't have a diagnosis at all, or, as you say, a small number of families who do but have been part of the SWAN UK family for so long that we're very happy to keep them because of the support they're finding from other parents. We work really closely with another of our members, Unique, who are a charity that support parents in exactly the situation you've talked about, where people have finally got a diagnosis and it's that kind of relief of having a name, but it's a super long name, and you find out you're one of only three families in the world with that diagnosis. And so although there's a real I think comfort for people, perhaps if you have a five year old and you're meeting a family who have a 13 year old and a family of a 19 year old, then you start to see a little bit about how your child might develop, but there's not enough kids affected that you can be really certain about that. So, it gives you a little bit more information, but not the kind of wealth of information you were hoping for about how your child's going to be impacted by a particular condition, and what the future might hold for you and for them. So, SWAN UK and Unique very much work alongside each other to kind of support families on whichever part of that journey they're on, because there's still a huge amount of uncertainty for families with those super rare conditions, as you say. Lisa: Definitely, and I'm sure you'll be familiar, Louise, yourself if you get time to go on the online communities and seeing the question that pops up quite regularly when somebody has received a diagnosis of, “Can we still remain part of the SWAN UK family?” And they very much use that word, family, because I think they do feel that, although all our children are different, there are children with physical, medical, cognitive, a combination of all the above syndromes, conditions, etc, they feel that kind of embrace of all being in a collective club of rare and unique and undiagnosed, and that's very comforting to the members. Louise: Absolutely, yeah, I think that sense of belonging and being able to reach out to other families that you've been on that journey with for many, many years. You know, many of our families join when their children are like one or two, and they're still with us when, you know, their children are 26, 27 [laughter], and that sense of having that community and that family and that belonging is really, really important to people, I agree. It makes a big difference psychologically to be part of a community you can reach out to and ask the questions that perhaps you can't ask to other people. Lisa: Celine, can I ask you how many patients for the 100,000 Genome Project have had a no primary findings diagnosis back? Celine: Well, back in 2021, there was a paper published in the New England Journal of Medicine, which reported that, in the initial pilot for the 100K, a diagnosis was found for around 25 percent of rare disease participants, and other studies looking at the diagnostic yield of whole genome sequencing have put the number anywhere between 25 percent to 55 percent, depending on the clinical indication. And we know that even already from the 100,000 Genomes Project, this pioneering project has led to more than 6,000 diagnoses being identified, and that number will obviously continue to go up as they explore the data and gather new insights. However, that still obviously leaves a significant number that won't get a result from whole genome sequencing, as many as half of those rare disease patients, and that was really the basis of the study that Jana and I worked on. So, we felt that there had been so much research really looking at the experience of parents who do receive a genetic diagnosis, and that a lot of attention rightfully does focus on the amazing successes of the 100,000 Genomes Project and genomic medicine more broadly, but actually that there is a considerable number of patients and parents and families who don't get a result, and we felt that it was important that we also focus on those parents and patients, and try and understand their experiences. Lisa: Yes, you can feel, if your child, for example, is under multiple different care specialists, that it can be quite hard, when you've just got this list of different names of things that are wrong, that you feel very much still out on the limb and forgotten about. But it's clear that, from your work, you're identifying that and pointing that back to the specialists, the consultants, to remind them that these parents and these children are still finding their ways through. Can I ask you, Jana, the study that was conducted, what would you say the main things from that study told us? Can you describe some of the emotions experienced by the parents, and what challenges that they have faced along that receiving the no primary findings diagnosis? Jana: Yes. So, many participants really felt very strong disappointment and sadness on receiving that no result, and for many, it kind of reflected the feelings they had had when they first realised they had a child and there was no diagnosis for their condition. And as Celine said, this was such a new technology that people had invested a lot of hope in, and so many felt that it had been their last chance of finding a reason for their child's condition, and that they'd come to the end of the road with that no primary finding result. And, well, one person described it as another door shut. And people talked about the actual toll taken, the emotional and physical toll, and one person described feeling low for several weeks following the result. And some talked about the timing of the result. Somebody got it as a letter just before Christmas, and so their whole family holiday that they'd prepared was marred by getting that news just before Christmas. And it often seemed to leave parents feeling isolated and unable to contribute to normal parental roles, such as going to parent groups, etc, because they felt that other mothers particularly - as it's mothers we were speaking to, other mothers, their experience of motherhood was so incredibly different to their own, and they felt a lack of support. And one parent actually talked about wanting to lock everyone in the house just to escape the feeling of judgement and pity from outside the front door. And some parents talked about finding it hard when other people would post on support groups that they had got results from the 100,000 Genomes Project, which was very difficult. And some talked about hope as finding it hard to keep hopeful but needing to keep hopeful. So, they talked of hanging onto a little bit of hope, as though that was quite an intense thing, which I think, Celine, you'll agree, that made us able to kind of identify that hope was really part of a coping mechanism for this whole process of going through this diagnostic odyssey. Celine: Yeah, people sort of talked about not wanting to let go of hope and the importance of hope, and that without hope, there was no sense of wanting to continue this journey of trying to find a diagnosis, and that it was still very important to people. And I think that parents did understand that, even though a no primary findings result now, that doesn't necessarily mean that they won't get a diagnosis at some point in the future. So, there's obviously the opportunity to do future reanalysis of the genome, particularly as we understand more about the function of different genes, and as new genes are added to many of the panels that we're using in whole genome sequencing. So, I don't think not finding a result means that there is no hope in these circumstances, but for many parents, they did talk about hope being too painful, and not wanting to be let down again, and really preferred to focus on the here and the now rather than necessarily focus on the future. Lisa: Yes, I can only speak from my own experience here, but I think I primed myself to actually forget about going on the 100,000 genomes sequencing because, having undergone genetic testing for certain conditions that they were quite convinced my daughter had from around the age of four months through to around the age of three years, I'd gone to so many appointments and thought, “Oh, this'll be the time that I turn up and somebody will tell me this is what is the diagnosis.” And when I then joined the 100,000 Genomes Project in 2015 with my husband and my daughter, the genetic experience, the discussions that we had at the time were very helpful in that it was made quite clear to me that potentially we wouldn't get a finding, and actually that any information that did come forward was perhaps unlikely to be hugely beneficial to our family at that point. So, I was quite clear what potential finding would mean to us. But I think in the back of my mind, subconsciously, I had hoped that, when we eventually got a diagnosis, it would – I don't know, bells, whistles, balloons going up, fireworks, etc. And then the experience of a letter thumping on the doormat, and I recognised the postmark quite quickly, and it was at that moment I suddenly thought, “Oh gosh, I haven't buried all these feelings of hope.” Because I opened that letter with quite trembly hands, and then this diagnosis or lack of diagnosis, you know, nothing had been found, and it was a bit… I don't know if it's been described as like a nail in the coffin experience, because I really hadn't realised I was still clinging to this hope all that time, and then again it was, you know, another, “No, nothing's there.” And I think because of the work I've undertaken with SWAN UK as a volunteer, and being quite involved in wanting to sort of educate myself and learn more, I did understand that, even though we had no primary findings, it didn't mean that the study, everything was closed to us. It didn't mean, you know, that things won't still be looked for. But equally, at the same time, it just meant that we had nothing yet to pin anything on at that point. And I think it's quite hard to pick yourself up and dust yourself off again, to be like, “Okay, we're still here, we're still circling that drain,” as it were. I think actually that takes us on quite nicely really, about what role hope has in the experiences of a child with rare and undiagnosed conditions. And again if I can just say that there's hope and there's realism, and somewhere along the way, if you've been on the journey for quite a long period of time like ourselves, you have to try and find a way of living with that hope and realism all at the same time. So, we're still hopeful that one day we might get some answers, but we're realistic that day to day we need to focus on the difficulties or the experiences that my daughter has, so that we can manage to give her the skills to live her life to the very best of her abilities. Certainly, that's our experience. And also I think if I'd let myself dwell forever on not having a diagnosis or a pathway specifically for that, it would have been quite difficult to carry on, pick ourselves up every day. What would you think about the role of hope there, Louise? What would you say your experience is from chatting to fellow parent/carers? Louise: Yeah, I think you've described it really eloquently and better than I'll be able to do, but when we talk to people, the phrase I always have in my head is kind of hope for tomorrow and help for today are the two things that people are looking for. So, making sure that that hope for tomorrow's still there both in terms of, you know, the NHS being really clear that it will provide support for individuals without a diagnosis, and there may be opportunities for reanalysis in the future as science makes future progress. And, you know, there is progress being made so fast at the moment in genomics and that's really welcome. So, making sure that people who've already had whole genome sequencing but not found anything continue to have access to that potential reanalysis I think is really important. As you've rightly said, Lisa, as well, thinking through in terms of hope for tomorrow, the opportunity to take part in clinical trials and to make that as easy as possible where treatments are being delivered, to have the opportunities to take part in trials for non-condition specific treatments, whether that's for epilepsy, which affects people across a whole range of conditions, or sleeplessness, which affects people across a whole range of genetic conditions. You know, there are both trials that only people who have a particular condition can take part in, and trials that are open more broadly, so making sure those opportunities are available as well, so that people have that kind of hope for the future. But alongside that, I think it's really important for the NHS to be clear with people about what help for today will continue to be available, and so we are working really hard with the NHS to emphasise the fact that when no diagnosis is possible, the NHS still needs to be clear to people about how they will be supported, whether that's through the genetics team or a particular discipline, perhaps the one that is the closest fit for their child's biggest need, whatever that may be, that they can still access more joined up care. So, you know, who is the person in the NHS, if you don't have a diagnosis, who's going to help you secure referrals to speech and language therapy, to physiotherapy, to learning disability nurses, and to the package of care that your child may need. Who is the clinician, if you don't have a clear diagnosis, who's going to be the person with the authority and the confidence to lead the multidisciplinary team, maybe up to 30 healthcare professionals who are going to support your child. You know, who is going to be the lead clinician that's going to pull that multidisciplinary team together and make sure that your child's not being prescribed stuff that's contraindicated, or that's going to help one element of their condition but make another element worse. So, we are really trying to work with the NHS to make sure they're thinking through, where will that support be for the family in terms of their healthcare. And alongside that, you know, many wider services like schools or social care or employers welcome the chance to talk to a geneticist or a genetic counsellor or nurse to understand what adjustments they might need to make for someone who clearly has a genetic condition but doesn't have a clear diagnosis. And so we're trying to kind of make sure the NHS is both focused on the kind of science side and making sure that the hope for future findings is there, but also the help side, and making sure that the right package of care is still available for families who clearly have a genetic condition. Lisa: Actually Louise, yeah, you've really summed it up excellently there, and whilst I am hugely grateful to the NHS and the various services, I can say, hand on my heart, my daughter has a huge number of professionals involved, both from the health side of things and social care side of things, and actually the person that kind of holds all that together is myself. And because we're under multiple different teams, every time a new medication, for example, is prescribed, I need to go back to our lead team, which in this case happens to be neuromuscular, and check that, for example, if gastroenterology have prescribed a medication, that it's not contraindicated from a neuromuscular side of things and so forth. It's all a bit like having sort of interlocking parts of a jigsaw, but perhaps no picture to follow [laughter], and that can be quite an isolating experience. And certainly, having chatted to fellow parent/carers, I know that's their experience as well. And I imagine, Celine and Jana, you found sort of similar experiences when conducting the research. Celine: Yeah, so my PhD actually was focusing on the sort of journey for parents as they go through the diagnostic process, and one of the things that came out really strongly from that body of work was how the parents were really carving their own care pathway, how they had to sort of push and fight to access services, but at the same time were the gatekeepers for their child's health. Having to make sure all the various teams and clinicians were kept up to date with all the different tests that they had and all the results. And, you know, at times, this could be really frustrating for a lot of parents, ‘cos they had to keep repeating their story over and over again, particularly ‘cos they didn't have a diagnosis. So, these parents really were having a very different parental experience to many of their friends and family, because their experience of being a parent to a child with an undiagnosed condition was really sort of as being a patient advocate, and as having to push and fight to access services. Lisa: Yeah, it's quite a unique experience. You are the specialist for your own child in that sense, I think would be the way I'd describe it. And I suppose over the years, I've got so used to sort of trotting out different medical explanations in terms that you can almost sound like you know what you're doing [laughter]. And a few times when I've been at medical appointments, and perhaps we've met a new specialist or consultant, they've said, “Oh, what's your field? What's your area of expertise?” And actually you just think, “No, I'm just a specialist in my own child” [laughter]. But that's quite an empowering feeling actually, so I guess that plays back into the feelings around hope and expectation, even with having an undiagnosed child. Lisa: When I was recruited to the 100,000 Genome Programme, we didn't actually as a family receive genetic counselling specifically, and I know that this is something that is incredibly important to many families, and how that can support you sort of going forward. We were quite lucky in our experience in that we knew that our daughter was definitely going to be our last child, so we didn't have the thoughts and insecurities around potentially what it might mean for any future children that we had. But certainly as my daughter has got older and she's asking her own questions, and our older children are at a stage in life where they're looking at potentially having families in the future, I know that those things have come up, and we're just still exploring what that will mean in the bigger picture. But can you tell us, Jana, really what can genetic counsellors do to help parents feel less isolated and better to cope with the uncertainty surrounding their child's condition? Jana: Yes, well, I'm sorry to hear you didn't have any genetic counselling prior to going on the 100,000 Genomes Project, because that consent conversation right at the beginning, before the whole genome sequencing, is really important. It's important to know what the range of outcomes may be, so that it may be that you might get a result, you might get a variant of uncertain significance, or you might get no result. And parents in our study did suggest that their sense of isolation when they got a no primary finding result would have been alleviated if they'd known how many were not getting results. So I think in the longer run, it's 40 percent perhaps received a result, so that's 60 percent that didn't receive a result, so those parents were not alone, but they felt very alone. And some suggested if they'd just had a leaflet really explaining that, and explaining that they'd still contributed to research and that that had been, you know, a good outcome in a sense, then they would have felt better about it. So, a lot of work can be done before the testing really, to explore how you might feel on that range of results, and then that way sort of prepare parents for how they're going to feel, and perhaps that helps them to have things in place, to know that it might be a vulnerable time with that letter, although that was particular for the 100,000 Genomes Project, to get the result in a letter in that way, and as you described, after such a long time, that you'd been able to forget that you'd been on the project. But to actually be a little bit prepared that it make take its toll on you might actually help with preparing oneself. It also might be helpful to include ways of promoting ways to enhance health and wellbeing for parents in terms of practical support, such as those things that you're already attempting to access, like the respite services, school support, support groups, and thinking about psychological wellbeing and ways of managing stress, psychological support for parents, and possibly spirituality based resources as well. And focusing maybe on what is known about the child's condition even without a diagnosis, so what's likely to be beneficial, and support parents in actively coping, such as what research they might be able to access, and continued medical support. And also actually having a named person within the genetics service, so they have someone to go to for any follow-up that has a name, and so they don't feel isolated from the genetic service. And signposting to those external resources, such as SWAN UK, can be very important as well, of course. Celine: I think it's also really important to add that hope isn't necessarily lost when you don't get a diagnostic result. And in a sense, what can be really helpful is for genetic counsellors to reframe that hope, if you like. So, one thing that we talk about in our paper is that it might be useful for health professionals to ask a question such as, “In light of the new information that we now have from the whole genome sequencing result, what are you hoping for now?” So in a way, it's sort of reframing that hope, sort of giving it a different context. Lisa: Definitely, and I think one of the things as well is that, because potentially for when parents were first recruited to a study such as the 100,000 Genome specifically in this case, that it might be quite a length of time between that initial recruitment and when the actual result comes out. And of course, in that time, with the advances in genetics, it's sort of somewhat of a Pandora's box really, isn't it, in that we're almost kind of finding the information out quicker than we actually know how to process it and what it potentially means. So actually if there's a genetic counsellor available to speak to those parents, or for those parents to be signposted to somebody who can say, “Well look, since you were recruited, actually this is happening, that's happening,” or, “These research projects are happening,” personally, I can say that is going to be really helpful and handy, and would have been really useful. I just know that for myself anyway and my family, that if there was a leaflet or something that had given me a way of knowing how I could contact somebody in the future, that would be really helpful. What ways do genetic counsellors use in maintaining a delicate balance between not creating false hope but also providing meaningful support to parents? What would you say around that, Jana? Jana: I think as we've already touched on, it's that managing expectations from the outset when the test is offered. So, not generating too much hype or excitement, but setting those expectations, giving that information about the diagnostic yield. Also, informing parents that what people do experience has been described as a rollercoaster of emotions. It's normal. You might also want to explore people, not only what they're hoping for, but also the outcomes that they might be fearing, and giving them a chance to voice those, because they can be very powerful things as well. A diagnosis might not be what you want to hear, so there can be a lot of ambivalence around wanting a diagnosis when it might actually be a life limiting condition, that you didn't really want that certainty. And also helping parents to explore how not receiving a result might feel, so that they've actually rehearsed it a little bit, and where they might go to when they need a bit of extra support. So, they already know, “I go and talk to my friends, that's where I get my support from,” so that they're kind of ready for it, and that might help them with that sense of isolation, but also validating these feelings. So, it's okay, it's okay to have that dip, it's okay to feel, that it's something that many people experience. And creating a safe space for people to feel that, so if they want to talk to a professional or a friend, that those feelings are validated. And in that way, kind of with that pre-counselling really, helping parents to develop their own set of resources, so they've got those to draw on. And as you've mentioned, Lisa, it's like having your own resources also helps generate that feeling of empowerment and control. And as Celine has said, it's really facilitating parents through that passage of reframing what you're hoping for, reframing what the future looks like, if you had one picture of a future. You need to become comfortable with the future you're now looking at. Lisa: Thank you, Jana. Louise, if I can ask you really, we've already touched on the role that SWAN UK can play for parents dealing with undiagnosed rare conditions, but perhaps if you could home in on that and explain in more detail the main focus of SWAN UK, and what that can do for parent/carers. Louise: So, what SWAN UK primarily does is bring together parents who are in a similar situation. So, we have a team of amazing parent representatives, who Lisa is one, who help us shape the support that SWAN UK can provide, and really make sure that it's based on a really strong understanding of what it's like to be a parent of a child with an undiagnosed genetic condition, and an understanding of that kind of expertise that parents who have been on that journey themselves will bring. So, we have a series of Facebook groups. Some of them are for different regions, so people come into contact with other parents in their area who are going through similar circumstances. Some of them are more around age. So, you know, we have Facebook groups for parents who are waiting for a diagnosis or have got a new diagnosis, and then we have a group called SWAN Graduates, which is for children who are older and over 18, so their parents can come together and share their experiences. So, it's really to help parents be able to talk to one another, to share their experiences, to support one another, and often to ask for advice. They're often kind of practical questions about, you know, “My child needs this kind of wheelchair, has anybody been able to source that from somewhere?” “My child's having real difficulties eating at the moment, can anyone give some advice on this particular challenge?” “This thing someone else has faced, how did you approach it? Where did you reach out for support?” So, that peer to peer advice and support is really at the heart of SWAN UK. And then what we try and provide around that is access sometimes to information events, where there's particular issues that are affecting a lot of SWAN families. So, we hope over the coming year to have a series of information events targeted at families with children who don't have a diagnosis, and some of it is just trying to have social events and bring people together again. We've had, for example, an active dads group in Wales, who've been bowling and wanted to go axe throwing, and really they just want to come together with other dads who are in the same situation, and being able to talk to one another and provide emotional support to one another. So, that's kind of the nub of SWAN UK and what we do, and then alongside that, that kind of fits in with Genetic Alliance's wider goal, which is much more around campaigning for improved services. So for example, the Genetic Alliance UK team has worked really closely with commissioners in Wales, who actually commissioned the first SWAN clinic, which is in Cardiff. That was a two year pilot, to see what support could be provided both to help SWAN families get a diagnosis, but far beyond that, to make sure that the care for families who don't have a diagnosis is better joined up. And that we feel has been a real success. Again, there hasn't been a really high diagnostic yield, there have been very few new diagnoses, but the support provided to the families who are in contact with that clinic, in terms of helping them access better joined up care both from the NHS and from services more widely, has been brilliant. And we're currently working with NHS England in the UK, who are exploring an opportunity to commission two SWAN clinics in England. So, that trying to kind of improve services, and then the third aspect of that is just working generally with the new genomic medicine service alliances as they emerge across England, to try and make sure they are thinking through what support they will need to continue providing to families who've gone for whole genome sequencing in future, not through a research project like 100,000 Genomes, but just through routine clinical practice and routine clinical diagnostics, what support will they need to provide for families who go through that process and don't get an answer. And that won't change the support they will need from the NHS. It will just mean that perhaps that clinic needs to play a more active role in helping them access those services. So, all of that kind of campaigning to have better services for family who have an undiagnosed genetic condition continues as well. Lisa: So, I think one of the things really just to finish off today, is of course looking at the future. Considering advancements in technology, would you say that future reanalysis of the 100,000 Genome Project is going to yield additional insights? Celine, can I ask you to comment on that? Celine: Yes, absolutely. As we understand more about the role and function of different genes, and as new genes are added to the panels, we will definitely be able to provide a diagnosis for more parents and more families. But I think we don't yet necessarily know exactly what that reanalysis will look like, and it's not really clear yet how this will work in practice. Lisa: And Louise, would you have anything else to add to that at all really? Louise: No, I think it is just that hope for the future and kind of help for today. I think the NHS needs to be equally clear about, you know, there's some amazing investment by the UK government in genomic research, and that's brilliant and we want that to continue, but equally we want the investment to be taking place into routine clinical services and diagnostic services, so that we can talk to people both about the hope of potentially getting a diagnosis in future, but making sure that the help continues to be available for as long as they don't have a diagnosis, and that help for families who don't have a diagnosis is going to be just as important. And what we try to ask for is both real clarity around what the NHS can provide, and really clear signposting to organisations like SWAN for families that continue to not have a diagnosis. And again, just to give an equal shout out to Unique, who are able to support families who have an ultrarare diagnosis, where perhaps they're the only person in the country with that particular diagnosis, or one of a handful of families around the world. Signposting to that peer to peer support will continue to be a really important part of the process as well, so that families can help one another, learn from one another, and just give each other support that they are kind of sharing that same journey and walking alongside one another on that journey as it continues. Lisa: And bringing this podcast to a close, can I just ask you really, any final thoughts, anything that you would sum up from your experience of researching the no primary findings and where we now are today? Celine: I think the main thing for me is just to sort of make it clear to parents that a diagnosis isn't necessarily a magic wand, even though it is obviously very important to a lot of parents. But that even without a diagnosis, we still have the opportunity to manage patients' symptoms, and often a diagnosis doesn't make a substantial difference, because parents are sometimes left with a lot of uncertainties and a lot of unanswered questions. So I think, and as Louise and Jana have said before, it's really sort of on focusing what we do know, and thinking about what we can offer and what support we can provide to parents and families even without a diagnosis. Lisa: Thank you very much to our guests today, Jana Gurasashvili, Celine Lewis and Louise Fish, for joining me as we discussed the impact of a no primary findings result. If you'd like to hear more like this then please subscribe to the G Word on your favourite podcast app. Thank you for listening. I've been your host, Lisa Beaton. This podcast was edited by Mark Kendrick at Ventoux Digital, and produced by Naimah Callachand.
In this podcast episode, we discuss how to conduct inductive content analysis (ICA) with Dr. Danya Vears, Principal Research Fellow and Team Leader with the Biomedical Ethics Research Group at Murdoch Children's Research Institute.
Professor Judy Lowthian leads a multidisciplinary research team as Head of Research and Principal Research Fellow at Bolton Clarke, a national not-for-profit aged and community care provider. She is an Adjunct Professor with University of Queensland's Faculty of Health and Associate Professor with Monash University's School of Public Health & Preventive Medicine. Her early professional career was as a speech pathologist in rehabilitation following acquired brain injury, and in management of interdisciplinary child and adolescent health services. Judy is internationally recognised in the field of gerontological health services research in emergency care, hospital-to-home care transitions, frailty, cognitive impairment and dementia, loneliness, palliative care, and implementation of new models of care with a focus on patient and family experience. Some resources: Jacques Lee from Mount Sinai in Toronto, radio interview that discusses loneliness as a vital sign https://www.cbc.ca/listen/live-radio/1-63-the-current/clip/16024574-loneliness-bad-smoking-says-who - Volunteer delivered social support program HOW R U? | Bolton Clarke Connect Local Connect Local - A FREE program linking over 65's to supports and activities in Glen Eira Storytelling – an intergenerational approach to social connection Life Stories Project | Bolton Clarke Interested in studying lifestyle medicine, health coaching and models of care in health and wellbeing? Check out the JCU postgraduate courses: Grad Cert, Grad Diploma, and Master. If you find this podcast valuable then subscribing, sharing, rating it 5 stars and leaving a review is appreciated. If you would like to send in your thoughts, insights, opinions, provide feedback or request a topic, please contact me via thegpshow.com Thank you for listening and your support.
The Global Food Security Summit is about to get under way, where political leaders and experts will come together to discuss how to make urgent progress on Sustainable Development Goal (SDG) 2: to achieve zero hunger and end all forms of malnutrition by 2030.Around 345 million people experience acute food insecurity according to the World Food Programme – an increase of 200 million compared to pre-pandemic levels. And the UN has warned we are not on track to achieve this global goal.So how did we get here? And do these alarming numbers mask longer-term progress towards achieving SDG 2?This episode paints a full picture of global hunger and malnutrition today. We ask whether the food system is really broken, and how the humanitarian system can better respond to food crises around the world. Our guests also share their hopes for what can be achieved at the upcoming Summit.SpeakersSara Pantuliano (host), Chief Executive, ODIValerie Guarnieri, Deputy Executive Director, Programme and Policy Development, World Food ProgrammeDr Stella Nordhagen, Senior Technical Specialist, Global Alliance for Improved Nutrition (GAIN)Dr Luka Biong Deng Kuol, Adjunct professor at Institute of Peace, Development and Security Studies, University of Juba, South SudanSteve Wiggins, Principal Research Fellow, ODI
Today we are discussing new Australian guidelines for diabetes related foot disease. Associate Professor Pete Lazzarini is a podiatrist and a conjoint Principal Research Fellow at Metro North Hospital & Health Service and QUT in Brisbane. Professor Stephen Twigg is a Clinical Academic, and the Kellion Professor of Endocrinology and Stan Clark Chair in Diabetes at the University of Sydney. Read more: https://www.mja.com.au/journal/2023/219/10/australian-evidence-based-guidelines-prevention-and-management-diabetes-related With MJA news and online editor, Sam Hunt. 24 mins.
The question of how multilateral development banks (MDBs) must transform themselves to address today's most pressing global challenges will again be under the spotlight at next week's World Bank/IMF Annual Meetings in Marrakech.Business as usual will no longer do. In this episode – produced in collaboration with the Center for Global Development – we ask what the countries these banks were set up to serve think about how MDBs should adapt and evolve. After all, their demands and preferences should shape the lending volumes, strategies and operations of MDBs.But the reality is we know little about these preferences, what client countries value about MDBs, and what they think the banks' weaknesses are – potentially curbing their demand for assistance in the medium to long term.SpeakersSara Pantuliano (host), Chief Executive, ODIMasood Ahmed, President of the Center for Global DevelopmentAnnalisa Prizzon, Principal Research Fellow, ODIMavis Owusu-Gyamfi, Executive Vice President of the African Center for Economic TransformationAmadou Hott, Special Envoy for the Alliance for Green Infrastructure in Africa, AfDB and former Minister of Economy, Planning, and Cooperation of SenegalIyabo Masha, Director and Head of Secretariat, G24Related resourcesODI at the Annual MeetingsMDBs can drive transformative change – now the G20 must inject urgency and sustain its supportCountry perspectives on multilateral development banks: a survey analysisA fair share of climate finance? An appraisal of past performance, future pledges and prospective contributorsMDB Reform Accelerator (Center for Global Development) Interactive African Transformation Index (African Center for Economic Transformation)
This week, Professor Kay Cook and Associate Professor Ben Phillips talk about reimagining what we value and how we value it when it comes to poverty and social policy in Australia.Both Professor Cook and Associate Professor Phillips are on the Economic Inclusion Advisory Committee and advocate strongly for raising the rate of support payments in Australia, to bring people out of poverty.Phillips takes us through the immediate steps and payments that would make a difference to poverty in Australia, and how to raise the revenue to make it happen. He says by lifting JobSeeker to 90% of the aged care pension would bring around one million people above the poverty line. For the millions of people still below the poverty line, it alleviates the depth of poverty they suffer. Cook reminds us that people who are receiving JobSeeker payments are being forced to choose between food and medicine, and in colder climates, also warmth. Cook puts in perspective through her own research, how having limited government support can also leave struggling parents reliant on child support from the other parent, making them vulnerable to financial abuse. Abusive former partners can exploit loopholes in a flawed system further impacting the lives of children. She says this would have less of an impact if people were able to receive benefits that did not force them into poverty.Both agree the Measuring What Matters Framework is a good start but acknowledged that there are flaws. Cook says what matters to whom is something that needs to be discussed. Phillips raises the issue that the lack of data means we may not be able to measure what we value as a society.___Professor Kay Cook is Associate Dean of Research School of Social Sciences, Media, Film and Education at Swinburne University of Technology, and a former Australian Research Council Future Fellow. Her research has focused on a range of social policy issues, including welfare-to-work, child support and child care policies. She is also a member of the federal government's interim Economic Inclusion Advisory Committee. Associate Professor Ben Phillips is a Principal Research Fellow at the Centre for Social Research and Methods at ANU. He has more than 20 years of experience as an economic and social researcher in Australia, and has worked on issues from housing affordability and financial stress to reform of the tax and welfare systems. He is also a member of the federal government's interim Economic Inclusion Advisory Committee. Sharon Bessell is a Professor of Public Policy and Director of both the Children's Policy Centre and the Poverty and Inequality Research Centre at ANU Crawford School of Public Policy.Arnagretta Hunter is the Human Futures Fellow at ANU College of Health and Medicine, a cardiologist, a physician, and a Senior Clinical Lecturer at ANU Medical School.You can find full show notes on the Crawford School of Public Policy LinkedIn account. Hosted on Acast. See acast.com/privacy for more information.
Associate Professor Samantha Loi is a Principal Research Fellow at the Melbourne Neuropsychiatry Centre and a neuropsychiatrist at the Royal Melbourne Hospital. We discuss - How she got into research - Why she chose Psychiatry as a specialty - How she got into neuropsychiatry - The levels of seniority in research - Samantha's typical work day - Who would be suited to research and how to get involved Email contact@balancedmedics.com if you'd like to speak with Samantha. For coaching with Isabella, go to balancedmedics.com/coaching
The Dementia Researcher, ISTAART Relay Podcast is back for a fourth series. Five leading researchers discussing their research, their field, and the work of the Alzheimer's Association ISTAART Professional Interest Area they represent. -- Part Four – Dr Dave Cash interviews Dr Shana D Stites representing the Diversity & Disparities PIA. -- Dave Cash is a Principal Research Fellow at University College London. Dave is a biomedical engineer that has worked predominantly in imaging (never let him near your wet lab if you like your glassware). His PhD involved image guided liver surgery at Vanderbilt University, and in 2005, he picked up and moved from the southern United States to London to do a post-doc. That led him to an opportunity to get involved in Alzheimer's disease trials. Dave is representing the ISTAART Neuroimaging PIA. -- Shana Stites is an Assistant Professor at University of Pennsylvania. As a clinical psychologist and researcher with the Penn Project on Precision Medicine for the Brain (P3MB), Shana's research focuses on advancing diagnosis and treatment of Alzheimer's. The goal is to understand ways to promote quality of life and psychological wellbeing. This includes understanding the impacts of the disease on individuals who may be directly affected by pathology as well as their family members. As part of this work, Shana has a special focus on better understanding how aspects of identity, such as age, gender, and race, operate as determinants in the disease experience. Shana is representing the ISTAART Diversity & Disparities PIA. -- The Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment (ISTAART) convenes the global Alzheimer's and dementia science community. Members share knowledge, fuel collaboration and advance research to find more effective ways to detect, treat and prevent Alzheimer's and other dementias. Professional Interest Areas (PIA) are an assembly of ISTAART members with common subspecialties or interests. -- There are currently 29 PIAs covering a wide range of interests and fields, from the PIA to Elevate Early Career Researchers to Biofluid Based Biomarkers and everything in between. To sign-up to ISTAART and a PIA visit: https://istaart.alz.org Note: ISTAART Membership is free for students worldwide, and for researchers of all levels based in Low- and Middle-Income Countries. -- To book your place at this year's AAIC (In-person and online) visit: https://aaic.alz.org -- You can also enjoy this show as a video podcast on our YouTube Channel at: https://youtu.be/VyKhWR4bQpc -- Find more information on our guests, and a full transcript of this podcast on our website at: https://www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.
The Dementia Researcher, ISTAART Relay Podcast is back for a fourth series. Five leading researchers discussing their research, their field, and the work of the Alzheimer's Association ISTAART Professional Interest Area they represent. -- Part Three – Beth Eyre interviews Dr Dave Cash representing the Neuroimaging PIA. -- Beth Eyre is a PhD Student (although she recently submitted her thesis and will be defending very soon) at The University of Sheffield. Beth is investigating cognitive and neurovascular function in pre-clinical models of Alzheimer's disease and in a mixed model of Alzheimer's and atherosclerosis. Beth is representing the ISTAART Vascular Cognitive Disorders PIA. -- Dave Cash is a Principal Research Fellow at University College London. Dave is a biomedical engineer that has worked predominantly in imaging (never let him near your wet lab if you like your glassware). His PhD involved image guided liver surgery at Vanderbilt University, and in 2005, he picked up and moved from the southern United States to London to do a post-doc. That led him to an opportunity to get involved in Alzheimer's disease trials. Dave is representing the ISTAART Neuroimaging PIA. -- The Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment (ISTAART) convenes the global Alzheimer's and dementia science community. Members share knowledge, fuel collaboration and advance research to find more effective ways to detect, treat and prevent Alzheimer's and other dementias. Professional Interest Areas (PIA) are an assembly of ISTAART members with common subspecialties or interests. -- There are currently 29 PIAs covering a wide range of interests and fields, from the PIA to Elevate Early Career Researchers to Biofluid Based Biomarkers and everything in between. To sign-up to ISTAART and a PIA visit: https://istaart.alz.org Note: ISTAART Membership is free for students worldwide, and for researchers of all levels based in Low- and Middle-Income Countries. -- To book your place at this year's AAIC (In-person and online) visit: https://aaic.alz.org -- You can also enjoy this show as a video podcast on our YouTube channel at: https://youtu.be/0R5hfPiTVSg -- Find more information on our guests, and a full transcript of this podcast on our website at: https://www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.
Demographer Liz Allen and social policy expert Ben Phillips join us to discuss the budget's impact on struggling Australians and the politics of the population debate.What impact will the modest increases to the JobSeeker payment and other benefits have on the lives of people who are doing it tough? Is the federal government doing enough to build the case for more substantial increases in social security spending? And should people be concerned about the impact of a growing population on infrastructure? On this episode of Democracy Sausage, Dr Liz Allen and Associate Professor Ben Phillips join Professor Mark Kenny to discuss the politics of population and the case for a stronger safety net.Liz Allen is a demographer and social researcher at the ANU College of Arts and Social Sciences and the author of The Future of Us: Demography gets a makeover.Ben Phillips is an Associate Professor and a Principal Research Fellow at the ANU Centre for Social Research and Methods.Mark Kenny is a Professor at the ANU Australian Studies Institute. He came to the University after a high-profile journalistic career including six years as chief political correspondent and national affairs editor for The Sydney Morning Herald, The Age and The Canberra Times.Democracy Sausage with Mark Kenny is available on Apple Podcasts, Spotify, Pocket Casts, Google Podcasts or wherever you get your podcasts. We'd love to hear your feedback on this series, so send in your questions, comments or suggestions for future episodes to democracysausage@anu.edu.au.This podcast is produced by The Australian National University. Hosted on Acast. See acast.com/privacy for more information.
Join Sue for an upcoming Live Virtual Workshop where you will learn from Sue practical tips & strategies to make a difference. Expert Guest: Professor Josephine Barbaro is a Principal Research Fellow and Neurodiversity Affirming Psychologist at the Olga Tennison Autism Research Centre, La Trobe University. She is co-founder of Australia's first ‘Early Assessment Clinic' for autism, focusing on children under 3 years old. A/Prof Barbaro's research interests are in the early identification and diagnosis of autism in infants, toddlers, and pre-schoolers, family health and well-being following a diagnosis, and Neurodiversity Affirming research and practice. In this interview we will talk about: ✅ What is autism screening/developmental surveillance? ✅ What are some of the early signs of Autism? ✅ How early can we identify and diagnose Autistic kiddos and what's the current average age of diagnosis? ✅ The tools Professor Babaro's developed – SACS (for professionals), ASDetect (for parents), how accurate they are, where they're being used, and how people can access them. ✅ What to do if you suspect a child is Autistic? ✅ How to talk to parents in an affirming and empathic way if you suspect their child might be showing early signs? ✅ What to do if Doctors dismiss parental/carer concerns and say things like, ‘They are just being a boy' or ‘they will grow out of it?' Read more about this podcast in the show notes found via the link below suelarkey.com.au/new-tools-for-diagnosis-with-professor-barbaro/ Join the Facebook group specifically for this podcast https://www.facebook.com/groups/suelarkeypodcastcommunity/ Follow my Instagram account for regular tips https://www.instagram.com/sue.larkey/ To learn more about teaching or understanding ASD, please visit my website below. https://elearning.suelarkey.com.au
Death has always been a taboo topic in Singapore. With our ageing population rising as well as Health Minister Ong Ye Kung's plans to increase the proportion of people dying at home or in palliative care settings instead of hospitals, is it time we begin talking more openly about our end-of-life plans? In this episode, host and Associate Director at the Institute of Policy Studies Liang Kaixin chats with guests Dr Chong Poh Heng, Medical Director at HCA Hospice Limited and Tay Jia Ying, an end-of-life doula and Founder of Happy Ever After. They discuss the concept of what a good death means, the changes needed to allow more people to spend their final moments at home and when people should begin thinking of their end-of-life plans. Read more about palliative care in Singapore: CNA (2 July 2022): IN FOCUS: Dying at home may seem ideal to many, but it's not always straightforward The Straits Times (2 June 2022): MOH to boost palliative care at home, better support caregivers About our guests: Chong Poh Heng Medical Director HCA Hospice Limited Dr Chong is Vice Chair of Singapore Hospice Council and Medical Director at HCA Hospice Limited. He founded Star PALS (Paediatric Advanced Life Support), a specialist paediatric palliative care service under HCA Hospice in 2012. He advocates in his field nationally as chairperson of the paediatric and young adults Advanced Care Planning (ACP) task force, and internationally at Asia Pacific Hospice Network (APHN) Paediatric Palliative Care Special Interest Group respectively. Dr Chong received the Healthcare Humanity Award in 2015, and won the Leader of Good (adult category) at the President's Volunteerism and Philanthropy Award ceremony in 2021. Tay Jia Ying Founder Happy Ever After Jia Ying started her exploration into end-of-life work in 2013 through her involvement as a producer with Both Sides, Now, an arts-based community engagement project on end-of-life issues. After seven years working with the community, she founded Happy Ever After in 2021 to connect directly with individuals to support them and their loved ones in navigating the complexities of life and death, love and loss, hopes and fears, laughter and tears. She is a certified end-of-life doula with The Dying Year, and a certified Respecting Choices 1st Steps Advance Care Planning facilitator. She is also a member of the National End-of-life Doula Alliance (NEDA), and is NEDA proficient. On Diversity is a podcast inspired by the Institute of Policy Studies Managing Diversities research programme. In each episode, we chat with guests to explore what diversity means to them, the changes they are making, and the changes they hope to see in an increasingly fragmented society. More from On Diversity Season 3 Episode 6: Social Worker Burnout with Louis Ng, MP for Nee Soon GRC and Cindy Ng-Tay, Director of Home at Children's Aid Society Season 3 Episode 5: Leaving the Law Profession with Andrew Chan, Partner at Allen & Gledhill LLP and Michelle Yeo, Of Counsel at LVM Law Chambers LLC Season 3 Episode 4: Racism at Work with Dharesheni Nedumaran, Head of Diversity, Equity and Inclusion, APAC, at Mediabrands and Shamil Zainuddin, Research Associate at IPS Social Lab Season 3 Episode 3: Ableism at Work with Cassandra Chiu, a vision impaired counsellor and advocate for PWDs, and Justin Lee, Senior Research Fellow at IPS Season 3 Episode 2: Ageism at Work with Heng Chee How, Deputy Secretary-General of the National Trade Union Congress (NTUC), and Associate Professor Helen Ko of the Master & PhD in Gerontology Programmes at the Singapore University of Social Sciences (SUSS) Season 3 Episode 1: Sexism at Work, with Corinna Lim, Executive Director of the Association of Women for Action and Research (AWARE) and Simran Toor, Chief Executive Officer at SG Her Empowerment Limited (SHE) Season 2 Episode 9: Youth Mental Health, with Dr Jacqueline Tilley, Assistant Professor of Clinical Psychology at the National Institute of Education (NIE) and Asher Low, Founder of Limitless Season 2 Episode 8: What Makes Us Singaporean, with Matthew Matthews, Principal Research Fellow of IPS and Head of IPS Social Lab, and Oon Shu An, Singaporean actress and host See omnystudio.com/listener for privacy information.
Dr. Fay Couceiro is Principal Research Fellow at the University of Portsmouth. Fay has a passion for researching environmental pollution. Fay and I spent most of the time talking about the latest research involving micro-plastic pollution. Fay opened my eyes to how micro-plastics is now all around us from every state to every country. From the foods we eat and the clothes we wear we are now surrounded. Fay is an optimist though and reassured me that researchers and the industry are working on ways to cut/reduce plastic pollution. Hope you enjoy this one.
The demands of the social work profession have recently been in the spotlight, in part because of the pandemic, as well as highlighted in Parliament. The heavy caseload and long working hours are just some of the problems social workers struggle to deal with. What are the pitfalls of working in a job that focuses so greatly on passion? What policies can be put in place to alleviate the challenges social workers face, and encourage them to stay in the profession? In this episode, host and Associate Director at the Institute of Policy Studies Liang Kaixin chats with two of our guests Louis Ng, Member of Parliament for Nee Soon Group Representation Constituency (GRC) and Cindy Ng-Tay, Director of Home at Children's Aid Society. They discuss how the community can support social workers, what the government can do to help the industry and what needs to change in the industry itself to retain younger social workers. Find out more about social worker burnout: CNA (17 April 2022): Back-to-back crises, days that end at 4am: Why some social workers in Singapore are burning out The Straits Times (14 December 2021): S'pore social workers' mental health badly hit during Covid-19 peak in 2020: Study About our guests: Louis Ng Member of Parliament (MP) Nee Soon GRC Louis was elected as MP for Nee Soon GRC in 2015. In 2001, he founded the ACRES (Animal Concerns Research and Education Society), an animal protection charity. He currently chairs the Government Parliamentary Committee for Sustainability and the Environment and is a member of the Government Parliamentary Committee for National Development. In 2014, he received the Advocate of the Year award in the inaugural Singapore Advocacy Awards in 2014 and the Inaugural Yahoo! “Singapore 9” award in 2011. Louis has been advocating on the issue of social worker burnout in Singapore since May 2021, pushing for legislative change in parliament. Cindy Ng-Tay Director of Home Children's Aid Society Cindy is a social worker by training with extensive experience working with low-income families and persons experiencing violence and abuse. Over the years, she has developed and executed programmes that aim to address poverty, violence and abuse in families and the community. Cindy is passionate about issues relating to early childhood trauma, poverty, income inequality and social mobility. She is an active advocate for disadvantaged communities in Singapore, where she contributes commentaries to local publications. She is also passionate about good social work practice and has developed standards framework to guide programmes and services and competency framework to guide the development of Social Workers and Social Service Practitioners. On Diversity is a podcast inspired by the Institute of Policy Studies Managing Diversities research programme. In each episode, we chat with guests to explore what diversity means to them, the changes they are making, and the changes they hope to see in an increasingly fragmented society. More from On Diversity Season 3 Episode 5: Leaving the Law Profession with Andrew Chan, Partner at Allen & Gledhill LLP and Michelle Yeo, Of Counsel at LVM Law Chambers LLC Season 3 Episode 4: Racism at Work with Dharesheni Nedumaran, Head of Diversity, Equity and Inclusion, APAC, at Mediabrands and Shamil Zainuddin, Research Associate at IPS Social Lab Season 3 Episode 3: Ableism at Work with Cassandra Chiu, a vision impaired counsellor and advocate for PWDs, and Justin Lee, Senior Research Fellow at IPS Season 3 Episode 2: Ageism at Work with Heng Chee How, Deputy Secretary-General of the National Trade Union Congress (NTUC), and Associate Professor Helen Ko of the Master & PhD in Gerontology Programmes at the Singapore University of Social Sciences (SUSS) Season 3 Episode 1: Sexism at Work, with Corinna Lim, Executive Director of the Association of Women for Action and Research (AWARE) and Simran Toor, Chief Executive Officer at SG Her Empowerment Limited (SHE) Season 2 Episode 9: Youth Mental Health, with Dr Jacqueline Tilley, Assistant Professor of Clinical Psychology at the National Institute of Education (NIE) and Asher Low, Founder of Limitless Season 2 Episode 8: What Makes Us Singaporean, with Matthew Matthews, Principal Research Fellow of IPS and Head of IPS Social Lab, and Oon Shu An, Singaporean actress and host Season 2 Episode 7: Homelessness, with Harry Tan, IPS Research Fellow, and June Chua, Co-founder of T Project See omnystudio.com/listener for privacy information.
2021 saw a five-year record high number of lawyers leaving the industry locally. What must change to encourage lawyers to stay on in the profession? What is being done to increase the retention of lawyers, especially younger ones? In this episode, host and Associate Director at the Institute of Policy Studies Liang Kaixin chats with Andrew Chan, Partner at Allen & Gledhill LLP and Michelle Yeo, Of Counsel at LVM Law Chambers LLC. They discuss what exactly is causing the mass exodus of lawyers from the profession, and how individual firms as well as the industry at large can help to reduce the stress faced by lawyers in Singapore. Find out more about lawyers leaving the profession in Singapore: AsiaOne (24 January 2022): Quitting law jobs for something 'risky': Young ex-lawyers on why they left the profession The Straits Times (23 January 2022): Young lawyers cite long hours, stress for quitting amid calls for more support from legal fraternity Today (22 January 2022): The Big Read: Burnt out and disillusioned, young lawyers head for the exit — and the industry is worried The Straits Times (10 January 2022): 538 lawyers in Singapore left profession in 2021, a five-year high About our guests: Andrew Chan Partner Allen & Gledhill LLP Andrew Chan's practice encompasses commercial work, and he is a specialist in dispute resolution (especially arbitration), trusts, and insolvency (corporate and personal). In arbitration, he has acted as counsel, been appointed arbitrator and appointed to give expert evidence on Singapore law. Andrew was admitted to the bar in 1993. In October 2011, he was presented the Minister for Law Outstanding Volunteer Award, the highest volunteer award for individuals given by the Ministry of Law Singapore, for providing expertise and helping shape insolvency practice in Singapore. Andrew is passionate about the topic of lawyers leaving the profession, and how to make changes in the industry. He wrote an article on the Great Resignation in the February 2022 issue of the Law Gazette. Michelle Yeo Of Counsel LVM Law Chambers LLC Michelle Yeo is a litigator with a special focus on white-collar criminal law. Qualified in Singapore and in the UK, she is a former legislation drafter and Deputy Public Prosecutor with experience in English law. Michelle began her legal career in 2011 as a Deputy Public Prosecutor at the Attorney-General's Chambers. In 2013, Michelle joined the AGC's Legislative Division, where she drafted Parliamentary bills and subsidiary legislation. She moved to the UK in 2016, where she worked in a law firm and volunteered at a prison law charity. An advocate for social justice and action, Michelle co-founded and is actively involved with ReadAble Ltd, a children's literacy and numeracy charity. She has also drafted Parliamentary speeches and questions for a former Nominated Member of Parliament. On Diversity is a podcast inspired by the Institute of Policy Studies Managing Diversities research programme. In each episode, we chat with guests to explore what diversity means to them, the changes they are making, and the changes they hope to see in an increasingly fragmented society. More from On Diversity Season 3 Episode 4: Racism at Work with Dharesheni Nedumaran, Head of Diversity, Equity and Inclusion, APAC, at Mediabrands and Shamil Zainuddin, Research Associate at IPS Social Lab Season 3 Episode 3: Ableism at Work with Cassandra Chiu, a vision impaired counsellor and advocate for PWDs, and Justin Lee, Senior Research Fellow at IPS Season 3 Episode 2: Ageism at Work with Heng Chee How, Deputy Secretary-General of the National Trade Union Congress (NTUC), and Associate Professor Helen Ko of the Master & PhD in Gerontology Programmes at the Singapore University of Social Sciences (SUSS) Season 3 Episode 1: Sexism at Work, with Corinna Lim, Executive Director of the Association of Women for Action and Research (AWARE) and Simran Toor, Chief Executive Officer at SG Her Empowerment Limited (SHE) Season 2 Episode 9: Youth Mental Health, with Dr Jacqueline Tilley, Assistant Professor of Clinical Psychology at the National Institute of Education (NIE) and Asher Low, Founder of Limitless Season 2 Episode 8: What Makes Us Singaporean, with Matthew Matthews, Principal Research Fellow of IPS and Head of IPS Social Lab, and Oon Shu An, Singaporean actress and host Season 2 Episode 7: Homelessness, with Harry Tan, IPS Research Fellow, and June Chua, Co-founder of T Project Season 2 Episode 6: The Young vs The Old, with Kanwaljit Soin, Orthopaedic and Hand Surgeon, and Teo Kay Key, IPS Research Fellow See omnystudio.com/listener for privacy information.
Race has recently been at the forefront of conversations surrounding workplace culture and hiring in Singapore. In addition to the new anti-discrimination laws which will soon be enshrined, what other measures must be put in place to ensure a racially inclusive workspace? Is Singapore's racial diversity truly represented at individual workplaces? In this episode, which is in conjunction with IPS' annual flagship conference, Singapore Perspectives 2023, host and Associate Director at the Institute of Policy Studies Liang Kaixin chats with Dharesheni Nedumaran, Head of Diversity, Equity and Inclusion, APAC, at Mediabrands and Shamil Zainuddin, Research Associate at IPS Social Lab. They discuss how hiring and appraisal processes can be made more equitable, how to approach the sensitive topic of race at work, and how workplaces can be made more inclusive for minority groups especially. Find out more about conversations on racism at work: CNA (27 June 2022): The Big Read: To stamp out everyday racism or microaggression, treat it as anything but casual The Straits Times (28 May 2022): Formalising HR practices can fight workplace racism: Panellists at race forum South China Morning Post (29 August 2021): Singapore will pass new laws to combat racism, workplace discrimination: PM Lee About our guests: Dharesheni Nedumaran Head of Diversity, Equity and Inclusion, APAC Mediabrands Dharesheni Nedumaran (Sheni) is a global Diversity & Inclusion specialist, with more than 10 years international experience spanning tech, NGOs, global businesses and government, working on data driven projects and programs with underrepresented communities, tailored to countries regulations and culture. In her current role as Mediabrands APAC Head of Diversity, Equity & Inclusion, she works across a network of more than 3000 media and marketing professionals in multiple agencies across 13 Asia-Pacific countries, to lead the development of a long term strategy and roadmap that helps to increase representation, create a culture of belonging and contribution, and promote respect, equity and fairness. Accredited with Campaign Asia's Women Leading Change award for Diverse & Inclusive Workplace for Mediabrands Singapore in 2022, Sheni has a Master's of Work & Organisational Psychology from the Vrije Universiteit. Shamil Zainuddin Research Associate IPS Social Lab Shamil Zainuddin specialises in applied ethnography and holds qualifications in Sociology which he has taught as a Teaching Assistant while completing his Masters in the National University of Singapore. Prior to joining IPS in 2018, he was a Senior Design Ethnographer at NCR Corporation, a global enterprise technology company. There, he spent five years using qualitative methods researching human experiences to inform R&D, innovation and marketing. He has received awards for applied ethnographic work and is the recipient of the Ministry of Home Affairs, National Day Award in 2005. Above all, he is most interested in carrying out the work to make the everyday easier for especially disadvantaged communities. He is an active volunteer with Beyond Social Services and highly encourages everyone to volunteer with an organisation they believe in. On Diversity is a podcast inspired by the Institute of Policy Studies Managing Diversities research programme. In each episode, we chat with guests to explore what diversity means to them, the changes they are making, and the changes they hope to see in an increasingly fragmented society. More from On Diversity Season 3 Episode 3: Ableism at Work with Cassandra Chiu, a vision impaired counsellor and advocate for PWDs, and Justin Lee, Senior Research Fellow at IPS Season 3 Episode 2: Ageism at Work with Heng Chee How, Deputy Secretary-General of the National Trade Union Congress (NTUC), and Associate Professor Helen Ko of the Master & PhD in Gerontology Programmes at the Singapore University of Social Sciences (SUSS) Season 3 Episode 1: Sexism at Work, with Corinna Lim, Executive Director of the Association of Women for Action and Research (AWARE) and Simran Toor, Chief Executive Officer at SG Her Empowerment Limited (SHE) Season 2 Episode 9: Youth Mental Health, with Dr Jacqueline Tilley, Assistant Professor of Clinical Psychology at the National Institute of Education (NIE) and Asher Low, Founder of Limitless Season 2 Episode 8: What Makes Us Singaporean, with Matthew Matthews, Principal Research Fellow of IPS and Head of IPS Social Lab, and Oon Shu An, Singaporean actress and host Season 2 Episode 7: Homelessness, with Harry Tan, IPS Research Fellow, and June Chua, Co-founder of T Project Season 2 Episode 6: The Young vs The Old, with Kanwaljit Soin, Orthopaedic and Hand Surgeon, and Teo Kay Key, IPS Research Fellow Season 2 Episode 5: The New Civil Society, with Carol Soon, IPS Senior Research Fellow and Head of Society and Culture, and Woo Qiyun, Environmentalist and creator of The Weird and Wild See omnystudio.com/listener for privacy information.
As part of The Enabling Masterplan 2030, Singapore aims to have 40 per cent of working persons with disabilities (PWDs) employed by 2030. Are the current measures in place sufficient to encourage the employment of PWDs? How big is the problem of ableism at the workplace in Singapore? What more must be done to ensure workplaces are inclusive for PWDs? On the third episode of the third season, which is in conjunction with IPS' annual flagship conference, Singapore Perspectives 2023, host and Associate Director at the Institute of Policy Studies Liang Kaixin chats with Cassandra Chiu, a vision impaired counsellor and advocate for PWDs, as well as Justin Lee, Senior Research Fellow at IPS, about the state of disability inclusion in Singapore and what can be done to ensure that PWDs are meaningfully employed and engaged at the workplace. Find out more about ableism at work: The Straits Times (17 August 2022): Singapore aims to have 40% of working-age persons with disabilities employed by 2030 The Straits Times (25 August 2022): People with disabilities bring new perspectives, strengths to workplace, say forum panellists Today (26 August 2022): Strides made towards an inclusive S'pore but more can be done, say disabled community and experts About our guests: Cassandra Chiu Psychotherapist and Coach Director at The Safe Harbour Counselling Centre Cassandra Chiu is a Director at The Safe Harbour Counselling Centre and is also a Consultant for Equal Opportunity and Corporate Disability Policies. She is vision impaired. Ms Chiu is also a lecturer in the post-graduate program under Executive Counselling and Training Academy Pte Ltd. She teaches modules on counselling the disabled, where she imparts knowledge to understand issues that disabled clients face and how to work with them. An active advocate and speaker for PWDs, Ms Chiu has written on the issue for local publication Today. She has also been featured on CNA938 and Must Share News. She received her Masters in Professional Counselling from Swinburne University of Technology in 2011. Justin Lee Senior Research Fellow at IPS Justin Lee is a Senior Research Fellow at the Institute of Policy Studies. He is interested in issues related to disability, community development and social services. He has created a wiki platform that allows mass participation in the mapping of social needs (socialcollab.sg) and co-founded a skilled volunteer matching platform (serve.sg). He is Chairman of ArtsWok Collaborative, and also serves on the Board of Trampolene and the Research Committee of Singapore Children's Society. He has a PhD in Sociology from UCLA. On Diversity is a podcast inspired by the Institute of Policy Studies Managing Diversities research programme. In each episode, we chat with guests to explore what diversity means to them, the changes they are making, and the changes they hope to see in an increasingly fragmented society. More from On Diversity Season 3 Episode 2: Ageism at Work with Heng Chee How, Deputy Secretary-General of the National Trade Union Congress (NTUC), and Associate Professor Helen Ko of the Master & PhD in Gerontology Programmes at the Singapore University of Social Sciences (SUSS). Season 3 Episode 1: Sexism at Work, with Corinna Lim, Executive Director of the Association of Women for Action and Research (AWARE) and Simran Toor, Chief Executive Officer at SG Her Empowerment Limited (SHE) Season 2 Episode 9: Youth Mental Health, with Dr Jacqueline Tilley, Assistant Professor of Clinical Psychology at the National Institute of Education (NIE) and Asher Low, Founder of Limitless Season 2 Episode 8: What Makes Us Singaporean, with Matthew Matthews, Principal Research Fellow of IPS and Head of IPS Social Lab, and Oon Shu An, Singaporean actress and host Season 2 Episode 7: Homelessness, with Harry Tan, IPS Research Fellow, and June Chua, Co-founder of T Project Season 2 Episode 6: The Young vs The Old, with Kanwaljit Soin, Orthopaedic and Hand Surgeon, and Teo Kay Key, IPS Research Fellow Season 2 Episode 5: The New Civil Society, with Carol Soon, IPS Senior Research Fellow and Head of Society and Culture, and Woo Qiyun, Environmentalist and creator of The Weird and Wild Season 2 Episode 4: Diversity in Elite Schools, with Gillian Koh, IPS Deputy Director and Senior Research Fellow, and Paul Jerusalem, master's student at NUS Season 2 Episode 3: The Plight of Buskers, with Yeo Ying Hao, Co-chairman of Buskers Assocation, and Louis Ng, Nee Soon GRC MP See omnystudio.com/listener for privacy information.
Singapore is a rapidly ageing society, with over 17% of our population being 65 years old and above as of June 2021. As a result, the retirement and re-employment ages for Singapore workers will be raised progressively to 65 and 70 respectively, which will result in an increase in older employees at workplaces over time. How prevalent is ageism in Singapore? What more can be done to encourage employers to hire older workers? On the second episode of the third season, which is in conjunction with IPS' annual flagship conference, Singapore Perspectives 2023, host and Associate Director at the Institute of Policy Studies Liang Kaixin chats with Mr Heng Chee How, Deputy Secretary-General of the National Trade Union Congress (NTUC), as well as Associate Professor Helen Ko of the Master & PhD in Gerontology Programmes at the Singapore University of Social Sciences. They discuss tackling ageist stereotypes at the workplace, catering upskilling programmes to the needs of older workers, and the ways in which workplaces can transform themselves to become more age-friendly. Find out more about ageism at work: The Straits Times (25 August 2022): Ageism and health are major barriers to seniors staying longer in the workforce The Independent (25 March 2022): MOM Survey: Employees over 40 are most often discriminated in workplace The Straits Times (1 November 2021): Debate on retirement, re-employment age and CPF: Four issues MPs raised About our guests: Helen Ko Master and PhD in Gerontology Programmes Singapore University of Social Sciences (SUSS) Associate Professor Helen Ko specialises in issues pertaining to the ageing workforce, geragogy and gerontological counselling. She is an active advocate for hiring seniors in the workforce. She has conducted many training programmes for seniors and employers, focusing on seniors employability and counselling of seniors. A/Prof Ko received her Doctor of Education from the University of Western Australia in 2015, where her research focused on training older adults. She was awarded the thesis prize for Best Piece of Research. She also holds a certificate in Counselling, Clinical Programme, from the Counselling & Care Centre, Singapore (1990). She has published several books including Counselling Older Adults: An Asian Perspective and Gerontological Counselling: An Introductory Handbook. She has served on various national committees, including the Inter-Ministerial Committee on Ageing Population. Heng Chee How Deputy Secretary-General at the National Trade Union Congress (NTUC) and Senior Minister of State for Defence Mr Heng Chee How is a Deputy Secretary-General of the National Trades Union Congress (NTUC). He joined the NTUC in 1995. Within the Labour Movement, he held numerous appointments, including being the Chief Executive Officer of the NTUC Club and the Executive Secretary of numerous key unions. He has been a member of the NTUC Central Committee since 1997. He advocates on mature workers' issues on various platforms, including tripartite committees on older workers as well as in Parliament. His work has been instrumental in the passing of legislation to better safeguard retirement re-employment rights of older workers and tripartite guidelines that foster their fair treatment in workplaces. In addition to his work at the NTUC, Mr Heng is a Member of Parliament since 2001 and Senior Minister of State for Defence since May 2018 On Diversity is a podcast inspired by the Institute of Policy Studies Managing Diversities research programme. In each episode, we chat with guests to explore what diversity means to them, the changes they are making, and the changes they hope to see in an increasingly fragmented society. More from On Diversity Season 3 Episode 1: Sexism at Work, with Corinna Lim, Executive Director of the Association of Women for Action and Research (AWARE) and Simran Toor, Chief Executive Officer at SG Her Empowerment Limited (SHE) Season 2 Episode 1: Conversations About Race, with Daniel Goh, Associate Professor of Sociology and Associate Provost of Undergraduate Education at National University of Singapore (NUS) and Haresh Tilani, Co-founder and Creative Director of Ministry of Funny Season 2 Episode 2: Stay-At-Home Dads, with Kelvin Seah, Stay-at-home Father and Adjunct Lecturer and Tam Wei Jia, Medical Doctor and Founder of Kitesong Global Season 2 Episode 3: The Plight of Buskers, with Yeo Ying Hao, Co-chairman of Buskers Assocation, and Louis Ng, Nee Soon GRC MP Season 2 Episode 4: Diversity in Elite Schools, with Gillian Koh, IPS Deputy Director and Senior Research Fellow, and Paul Jerusalem, master's student at NUS Season 2 Episode 5: The New Civil Society, with Carol Soon, IPS Senior Research Fellow and Head of Society and Culture, and Woo Qiyun, Environmentalist and creator of The Weird and Wild Season 2 Episode 6: The Young vs The Old, with Kanwaljit Soin, Orthopaedic and Hand Surgeon, and Teo Kay Key, IPS Research Fellow Season 2 Episode 7: Homelessness, with Harry Tan, IPS Research Fellow, and June Chua, Co-founder of T Project Season 2 Episode 8: What Makes Us Singaporean, with Matthew Matthews, Principal Research Fellow of IPS and Head of IPS Social Lab, and Oon Shu An, Singaporean actress and host Season 2 Episode 9: Youth Mental Health, with Dr Jacqueline Tilley, Assistant Professor of Clinical Psychology at the National Institute of Education (NIE) and Asher Low, Founder of Limitless See omnystudio.com/listener for privacy information.
2022 has seen a greater focus on encouraging gender equality at the workplace in Singapore. The White Paper on Singapore Women's Development released in March 2022 highlighted the introduction of laws which would encourage flexible work arrangements and support greater gender diversity on boards, to name a few. However, is there more that must be done to ensure gender diversity and equality at work? What are the greatest barriers facing women at the workplace? On the first episode of the third season, which is in conjunction with IPS' annual flagship conference, Singapore Perspectives 2023, host and Associate Director at the Institute of Policy Studies Liang Kaixin chats with two of our guests Corinna Lim, Executive Director of the Association of Women for Action and Research (AWARE) and Simran Toor, Chief Executive Officer at SG Her Empowerment Limited (SHE) about the laws that are in place to protect women at work, as well as what can be done to reduce the incidences of sexual harassment and unconscious gender bias at work. Find out more about sexism at work: Today (11 July 2022): Woman Up: From job interview to the boardroom, gender bias often follows women through each step of the career ladder CNA (9 April 2022): IN FOCUS: Beyond diversity quotas and anti-discrimination laws, can Singapore embrace gender equality at the workplace? The Straits Times (28 March 2022): 25 action plans from the White Paper on Singapore Women's Development Tripartite Alliance for Fair & Progressive Employment Practices (4 March 2022): Equipping and Supporting Women in the Workplace Today (3 March 2022): Over 1 in 5 S'poreans believe gender discrimination exists in the workplace: Survey About our guests: Corinna Lim Executive Director of the Association of Women for Action and Research (AWARE) Ms Corinna Lim is the Executive Director of AWARE, the Association of Women for Action and Research. Ms Lim joined AWARE as a member and volunteer in 1992 and has been a women's rights activist for close to 30 years.Since becoming Executive Director in 2010, Ms Lim has been responsible for a range of initiatives including the setting up of the Sexual Assault Care Centre, the only specialised service in Singapore that provides support to sexual assault victims. She also led teams at AWARE to successfully advocate for the enactment of the Protection from Harassment Act, the repeal of marital rape immunity, better access to housing for single parents, gender equal workplaces and greater support for low income families and caregivers of the elderly.In recognition of her contributions to civil society and the advancement of women's rights, Ms Lim received a Fulbright Scholarship (1998 – 1999). As Executive Director, Ms Lim has improved the governance and management of AWARE, resulting in AWARE being awarded the Charity Governance and Transparency awards in 2015. Simran Toor Chief Executive Officer at SG Her Empowerment Limited (SHE) Ms Simran Toor began her legal career as a criminal prosecutor at the Attorney-General's Chambers of Singapore, and thereafter spent 15 years at a Big 4 law firm, where she specialised in white-collar investigations and regulatory matters. Ms Toor is a strong proponent of diversity, gender equity, and community development through outreach. Prior to leaving legal practice to join SHE, she was an elected member of the Council of the Law Society of Singapore, where she took a particular interest in promoting gender and access to justice issues. In particular, Ms Toor co-led the Law Society's Women in Practice Task Force that looked into the challenges facing women lawyers in the modern-day workplace. She also co-founded/chaired the Law Society's Women in Practice Committee that spearheaded the launch of a template anti-workplace harassment policy for adoption by all law firms. On Diversity is a podcast inspired by the Institute of Policy Studies Managing Diversities research programme. In each episode, we chat with guests to explore what diversity means to them, the changes they are making, and the changes they hope to see in an increasingly fragmented society. More from On Diversity Season 2 Episode 1: Conversations About Race, with Daniel Goh, Associate Professor of Sociology and Associate Provost of Undergraduate Education at National University of Singapore (NUS) and Haresh Tilani, Co-founder and Creative Director of Ministry of Funny Season 2 Episode 2: Stay-At-Home Dads, with Kelvin Seah, Stay-at-home Father and Adjunct Lecturer and Tam Wei Jia, Medical Doctor and Founder of Kitesong Global Season 2 Episode 3: The Plight of Buskers, with Yeo Ying Hao, Co-chairman of Buskers Assocation, and Louis Ng, Nee Soon GRC MP Season 2 Episode 4: Diversity in Elite Schools, with Gillian Koh, IPS Deputy Director and Senior Research Fellow, and Paul Jerusalem, master's student at NUS Season 2 Episode 5: The New Civil Society, with Carol Soon, IPS Senior Research Fellow and Head of Society and Culture, and Woo Qiyun, Environmentalist and creator of The Weird and Wild Season 2 Episode 6: The Young vs The Old, with Kanwaljit Soin, Orthopaedic and Hand Surgeon, and Teo Kay Key, IPS Research Fellow Season 2 Episode 7: Homelessness, with Harry Tan, IPS Research Fellow, and June Chua, Co-founder of T Project Season 2 Episode 8: What Makes Us Singaporean, with Matthew Matthews, Principal Research Fellow of IPS and Head of IPS Social Lab, and Oon Shu An, Singaporean actress and host Season 2 Episode 9: Youth Mental Health, with Dr Jacqueline Tilley, Assistant Professor of Clinical Psychology at the National Institute of Education (NIE) and Asher Low, Founder of Limitless See omnystudio.com/listener for privacy information.
Date of Lecture: 7 June 2022 About the Lecture: Saffron Woodcraft will speak about legacy and livelihood security in east London and Penny Bernstock will review London 2012's housing legacy and the broken promises. Victoria Austin will look at how disability inclusion was embedded in London 2012 and how the paralympic legacy model has been used to build the Global Disability Innovation Hub. Clare Melhuish will discuss culture and heritage in the Olympic Legacy and lifelines in a changing landscape. About the Speakers: Dr Penny Bernstock, Senior Research Fellow(Visiting) at Institute of Global Prosperity Clare Melhuish, Director and Principal Research Fellow at UCL Urban Laboratory Victoria Austin, Co-Founder and CEO at Global Disability Innovation Hub Saffron Woodcraft, Principal Research Fellow at Institute for Global Prosperity (IGP)
Jon Robson is a Principal Research Fellow at the University of Reading. He joins us to discuss his work on the North Atlantic Climate System Integrated Study (ACSIS) and several other research projects, parenthood and science, and his experiences of staying at one institution in his career to date. You can follow Jon on Twitter @JonIRobson Hosts: Dan(i) Jones and Ella Gilbert Music and Cover Art: Dan(i) Jones Editing: Sian Williams Page Audio Engineering: Lilian Blair Follow us on Twitter at @ClimateSciPod --- Send in a voice message: https://anchor.fm/climate-scientists/message
In this episode, Principal Research Fellow at Latrobe Sport and Exercise Medicine Research Centre, Dr Joanne Kemp PhD, talks about hip pain treatment and research. Today, Joanne talks about the common causes of hip pain, the difference between men's and women's hip pain, and the outcomes for patients that “wait and see”. How can PTs design and conduct evidence-based treatment programs? Hear about treating overachievers, referring out and using other treatments, and the upcoming Fourth WCSPT, all on today's episode of The Healthy, Wealthy & Smart Podcast. Key Takeaways “It's important that patients understand that exercise is good for them and is not going to cause damage.” “With any strengthening program, you only need to do it 2 or 3 times a week to be effective.” “It's probably going to take 3 months for our rehabilitation programs to reach their full effect.” “If you don't get it right the first time, and if it takes you a little while to find your space, that's actually okay, because it's about the long journey, and you'll get there eventually.” “Don't stress about failure. It's about what you learn from that failure and how you adapt and change what you do.” More about Joanne Kemp Associate Professor, Dr Joanne Kemp, is a Principal Research Fellow at Latrobe Sport and Exercise Medicine Research Centre and is a titled APA Sports Physiotherapist of 25+ years' experience. Joanne has presented extensively on the management of hip pain and hip pathology in Australia and internationally. Her research is focused on hip pain including early onset hip OA in younger adults, and its impact on activity, function, and quality of life. She is also focussed on the long-term consequence of sports injury on joint health. She has a particular focus on surgical and non-surgical interventions that can slow the progression and reduce the symptoms associated with hip pain, pathology, and hip OA. Joanne maintains clinical practice in Victoria. Suggested Keywords Healthy, Wealthy, Smart, Pain, Hip Pain, Pain Management, Injuries, Research, Osteoarthritis, Exercise, Physiotherapy, WCSPT, To learn more, follow Joanne at: Email: j.kemp@latrobe.edu.au Website: https://semrc.blogs.latrobe.edu.au/ Twitter: @joannelkemp ResearchGate 4th World Congress of Sports Physical Therapy. Subscribe to Healthy, Wealthy & Smart: Website: https://podcast.healthywealthysmart.com Apple Podcasts: https://podcasts.apple.com/us/podcast/healthy-wealthy-smart/id532717264 Spotify: https://open.spotify.com/show/6ELmKwE4mSZXBB8TiQvp73 SoundCloud: https://soundcloud.com/healthywealthysmart Stitcher: https://www.stitcher.com/show/healthy-wealthy-smart iHeart Radio: https://www.iheart.com/podcast/263-healthy-wealthy-smart-27628927 Read the Full Transcript Here: 00:02 Hey, Joe, welcome to the podcast. I'm so happy to have you on. I've been wanting to have you on this podcast for such a long time. So thank you so much. 00:10 Thanks, Karen. It's great to be here, finally. 00:13 And of course, today we're going to be talking about hip pain, hip pathology, that is your zone of genius. So let's just dive right in. So let's talk about some common causes of hip pain in adults. And does this differ between women and men? 00:36 Yeah, look, it's a great question. And I think probably, we, I think we're starting to change our perspective on that difference between men and women and the causes of hip pain. I think that previously, we've sort of been very aware of the burden of hip pain in men and particularly young male athletes that there's been, you know, a growing body of research that's looked at at the prevalence and burden and causes of hip pain in young men. And probably that's led to a misconception that it affects men more than women. But it's only really that the research has been done in men, less and less so in women, like we see across, you know, the whole medical space. So if we think about the common causes of hip pain across the lifespan, when we're looking in sort of the adolescent and young adult population, you know, typical causes can be things like hip dysplasia, and that's actually is more common in women or young girls and women than boys and men so probably affects three times as many girls and women as it does men. And I think the prevalent when we're you know, the prevalence is perhaps higher than we previously thought. So, some studies are suggesting that up to 20% of adults have some form of hip dysplasia are shallow, hip socket shallow, so turbulent, and, and that that does lead to an increased risk of developing hip osteoarthritis in later life in later life. And even as young adults, sometimes we see patients with hip dysplasia, presenting with arthritis who need to go to hip replacement at a really young age in their 20s and 30s. So, hip dysplasia is a really common one. Another one that we've heard a lot about in the last 10 years is femoral acetabular, impingement syndrome, or FAI syndrome. So that's traditionally thought to be where there's impingement between the ball and the socket, either due to extra bone on the ballpark of the hip, which is can morphology or deep or retroverted socket, which has pencil morphology. And that's probably where a lot of the studies have been done, particularly in that young male adult adult population. But what we're now seeing when we look at the big cohorts, particularly of patients that end up presenting to hip arthroscopy is that it's about 5050. It's about 50% men and 50% women. So that burden is pretty equal across men and women. And that's another thing that does lead to an increased risk of hip osteoarthritis in later life. But the risk is not quite as high in FAI syndrome as it is in hip dysplasia. And it certainly is, it tends to be a slower burn. So these patients present for their hip replacements probably in their 50s and 60s, whereas hip dysplasia, we're seeing these patients in their 20s and 30s, with hip osteoarthritis. So that's probably the second most, the you know, the second cause in that younger age group. Then as we move into older adults, so sort of, you know, people 35 Plus sort of middle aged and older adults, that's where we really see hip osteoarthritis presenting itself, and it can be due to dysplasia or FAI syndrome. But it can also just sort of be that idiopathic arthritis that might be due to occupation, lots of different things. And again, that's reasonably equal men and women, but we do see women probably having a little bit more arthritis than men and more women going to hip replacement than men. And the outcomes for hip replacement are not as good in women as they are in men. So that burden is still probably skewed towards being higher in women than men. And then the other cause of hip pain that we see particularly in the middle age and older women is other gluteal pathologies or lateral hip pain, sometimes called you know, TRAQ, enteric, besides gluteal, tendinopathy, gluteal tendinitis, it has lots of different names. But that's a burden that definitely disproportionately affects women, over men. And particularly, once women get into that perimenopause, or menopause or post menopausal age group, there seems to be a relationship with with with hormones and with estrogen levels and the likelihood of gluteal tendinopathy becoming symptomatic as women sort of transition through that change. And so that's another really common cause. And we're now starting to be aware that often these women will present with combined hip osteoarthritis and gluteal tendinopathy. And that's where it can get really, really, really tricky as well. So yeah, look, it does. There's different, you know, different things that you see across the lifespan, but the burden is definitely I think, disproportionately higher in women than in men in a number of those conditions. 04:58 Yes, and I am firmly In the last group that you mentioned, I am just getting over, if you will, getting over gluteal tendinopathy, where I have to tell you it that is some serious pain. And, you know, when you're a physical therapist and you have people coming in, and they're explaining their pain to you, and you try and sympathize or empathize now I'm like, it is painful. Like I couldn't walk, I couldn't stand for more than like, four minutes. Yeah, 05:29 at least I've had the same thing. And, and I've been lucky that mine, I was sort of able to get on to it, knowing what it was and what to do fairly quickly. But it's very, and I think this is the thing with hip pain until you've had hip pain, whether it's glute tendinopathy, or intra articular, hip pain, it's really disabling. And it really affects everything you do in life, you can't sit without hurting, you can't walk without it hurting, you can't stand without it hurting, you can't lie on your side, without it hurting, you're getting in and out of the car, getting dressed, you know, trying to put your shoes on, it just affects every aspect of your life. And you know, and the pain can be quite intense and severe. So it does. You know, for people who are affected by hip pain, the burden is huge. And we see it reflected in the studies as well, where if you look at outcome scores for quality of life, young people with things like displays your FAI syndrome, their quality of life scores are as bad as people who have hip arthritis who are waiting for hip replacement. So it does, it's very, when you've got it, it's very, very impactful. And I think people until you've experienced it, perhaps people underestimate how bad it can be. 06:33 Yeah, and it can be really, like you said, it's very, very disabling. And it also can can make you very nervous. So you know, when these patients come in to see you. So as the physio, when these patients come in to see you, it really behooves you to sit and listen and really get that whole story so that you can make that differential diagnosis as best you can, if you don't have the diagnostic test to back it up, which often happens. Yeah, absolutely. 07:01 And I think that's the thing when the patient's present to you, and they're complaining of pain in that hip area, you can't just go to one test or one scan and say, Oh, it's definitely these, it's actually there's lots of pieces of the puzzle puzzle that you've got to put together, it can be really complex, and you absolutely have to listen to the patient. And I think fear, like you just said, is a huge thing. And we've seen this in our some of our qualitative work that's currently under review, but others as well that these patients are terrified to move, or to do exercise because they think it's going to hurt more. And they're really scared that it's going to cause more damage. And, and the irony is that exercise is the thing that we know is like is going to make them better. And once they get moving, they do feel better, but they're so scared to move because they're scared, they're gonna break something or make it worse or end up needing a hip replacement that they they don't they don't move. And it fear is a huge problem, you know, with these people. 07:53 Yeah, I mean, even myself as a physio I knew I needed to exercise, I sort of outsource my physio exercises to a friend of mine, Ellie summers, who's on the, on the west coast here in the United States, and she sent me exercises and even doing them, like it's not super comfortable. But within a month, I felt so much better. And now, you know, I'm back to running on the treadmill and doing all the things. But oftentimes, these patients and I may be wrong, but they're not sort of picking up on this within the first month of pain, you know, they might say, Oh, um, it'll go away. Let me give it another couple of weeks and have a couple of weeks. Whereas I was like, Okay, this is really painful. I'm getting to a doctor asap and starting these exercises ASAP. So what have you seen, even through the literature about when patients start to seek out care for this? And how can that affect their outcomes? 08:52 I think it's one of the things with hip pain that patients often will just leave it and they'll wait and see. And so we do know that in the younger age group, like if you think about FAI syndrome, for example, people will often not present for two or three years, they will pull up with the pain because it kind of comes and goes so they'll have a flare up, they'll be bad for a few weeks, it'll go away for a few weeks and have another flare up. And so because it's coming and going, they, I guess remain optimistic. It's human nature to be optimistic that it's going to get better by itself. And so it can often be a couple of years. We see this in the literature, you know, two or three years, but I see that in my clinical practice. And I'm sure you do, too, Karen, that patients, they'll come to you and they'll say, oh look, I've had this for two or three years, I was waiting for it to go away and now it's you know, suddenly getting worse and that's when they seek out care. And I think too, you know if we think coming back to what we were talking about with women is that these problems affect women who are really busy so they are often have busy careers. They're looking after families often, they they might be studying as well. They're juggling lots of things. So for them to try and fit in the medical care or, you know, physio care or whatever they need. It's really hard for them to find to make the time to do that. And I think that that's probably why they potentially delay seeking, seeking treatment as well. 10:12 Yeah, so many factors go into it. But bottom line is it hurts. Now, how let's talk about the physio side of things. So how can PTS design and conduct an evidence based treatment program? For, we'll say, for adults with hip pain? Yep. 10:31 So I think we probably the first thing is to set really good expectations for the patient. So often patients will come potentially looking for the quick fix. And so I think it's important that right up front, we say to our patients, that it does take a while for things to work, you should be starting to improve over that time, but they need to be committed to an exercise program that we know needs to be now at least three months long. So I think both the therapist and the patient need to be prepared for that longer term commitment as well. So I think that's the first thing is setting expectations, right. And then around those expectations, it's also really important that patients understand that exercise is good for them and is not going to cause damage. So you're really trying to get the confident to be able to exercise part of that is an understanding that it will like you just said like when you did your exercises, it's not super comfortable. But that's okay, they need to they don't want to be in a lot of pain, but they will probably have some pain and that that's actually okay and normal to have that. And it doesn't mean that they're causing more damage. That's just a normal part of the body adapting to the exercise process. Sometimes I find with patients to you in order to convince them of that, because sometimes they're a bit skeptical, they don't quite believe you that they give you know, they will do exercises for a week, just look, just have a week off the exercise and see what happens to your pain. And what they find is pain is no better when they're not exercising. But sometimes it's worse, it's usually worse or the same. And so then they're like, Oh yeah, now I understand the exercises and actually making my pain any worse. And so sometimes you might need to do that to get them to buy in. So I think getting them to buy into the timeframe the commitment that they're going to need to do and the fact that they will have a bit of pain, that's probably the biggest thing, then once you've done that, then you can start to develop your exercise program and the foundations of our exercise program. I like to think of it as being sort of two pronged. So the first one is the local exercise that we're doing for the hip joints. So that's where we do a lot of our strengthening exercises. So strengthening up the muscles around the hip. So the hip abductors, and the adductors flexes in the extensors. But then also really focusing on the core and the trunk is important because that controls the acetabulum, which controls the socket. So putting that in and then you know functional exercises as well. So teaching them how to do things like squats and lunges and going up and down stair. So our local rehab exercises should have primarily a strength focus, they might also need to have a range of motion focus as well. But we need to be careful with ranges of motion because sometimes those ranges of motion might be provocative for patients. So going into a lot of rotation or a lot of flexion could provoke pain. So strength is probably our big biggest focus. But then the second prong of our rehab program should be around general fitness in general activity. So you know, we know that the physical activity guidelines say that everybody should be doing 150 minutes of moderate activity a week or 75 minutes of vigorous activity, then that's just to be a healthy person, regardless of whether you've got a sore hip or not. So I think trying to get them to do general fitness, cardio, whatever you want to call it alongside their hip specific rehab is, is the thing that you need to do. And then what I try and do is I try and make that hip specific rehab, sort of normalize it as fitness training, rather than rehab. Because people get, they're going to be like, don't want to do rehab, everyone gets bored of rehab, you know, at home with your little bands. So trying to get them to do things like you know, incorporated as part of their twice a week strength training, where they go to the gym, for example, is really important. And with any strengthening program, you only need to do it two or three times a week to be effective. So people don't have to do it every day. So I think that's important too to for them to know, they'll get they'll have days off where they don't have to do it. But to find two or three days a week where they can commit to this the strengthening component of the program, the cardio fitness component of their program can fit in around their schedule. And something that I really like to do with patients is to sit down and actually look at their weekly schedule and help them schedule it into their diary. So don't just say to them, you go do this, you know, five times a week, you actually have to fight help them find those chunks of time where they can do it and they can find 30 minutes in their day to be able to commit to that exercise program. 14:50 Yeah, I really love that you said to emphasize that the strength thing has to be done two to three times a week, because oftentimes Well, I mean, I'm in New York City where you have a lot of is like very driven, sort of type A folks. And they think if you're not doing it every day, then it's not working. Yeah, you know, so to be able to reframe that for them and say, Hey, listen two to three times a week is what our goal is, and be very forceful on almost holding them back. Do you have any tips on how to hold people back? For those folks? Who are the overachievers? 15:26 It's hard. Yeah, it's really tricky, isn't it? I think sometimes I think people have to learn for themselves. So you kind of have to let them find out the hard way, maybe, and be prepared with some painkillers to settle things down. But ideally, you don't want to do that, if you can help it, I think, I find that presenting the evidence can be really, really helpful. So you know, talking about the strengthening guidelines that that show that two to three times a week is where you're going to get the maximum effect of strength. And if you do more than that, it's not going to really add to that you'll have already sort of hit that ceiling, and potentially give them something different to do on those other days, if you don't want them doing strength training two to three times a week. If there's someone who wants to do something every day, helping them find other things on those other days, so perhaps, you know, mixing it up with some cycling, walking or jogging, if they are able to do that some swimming, you know, sometimes, you know, it might be appropriate or safe for these patients, if they enjoy things like yoga or pilates, they can do that if it if it doesn't hurt in addition to their other things. So I think those type A personalities, you might need to fill the space on those other days. Give me something else to do. 16:33 Yeah, I think that's great advice. And now, sometimes, as physiotherapist we have to refer out. So when is it appropriate to refer out or to use other treatments such as surgery? How do we navigate that as a physio? 16:50 It's tricky. And I think the most important thing is that that has to be a shared decision that we make with our patients. And at the end of the day, they will have their beliefs and their priorities that will probably take them in certain directions. Having that three month rule is a good rule, I think that we know it's probably going to take three months for our rehabilitation programs to reach their full effect. But but it doesn't mean to say you keep doing things for three months, if you're not getting any improvement, we really want to see them starting to head in the right direction, probably within around about four weeks. Within, you know, two or three treatments, you should be starting to see some change even though we know it's gonna take longer than that to get the full effect. I think that if you're not seeing change within that first month or so, you have to start asking yourself questions about well, why why why aren't I getting changed? Do I need to look at this and red flags here? Do I need to potentially refer the patient to their GP? For some imaging, we know that, you know, people have a history of cancer, that breast cancer and the gynecological cancers and prostate cancer really caught the hip joint is a really common point from you know, where the cancer metastasizes. So, I think bearing in mind our red flags, you know, women with guide other gynecologic non cancer, but other gynecological issues, you often get pain in that same area. So, being open minded about some of the non musculoskeletal causes of pain and being prepared to refer on if someone's not improving in that time is important. Imaging, you know, we don't want to jump to imaging straightaway, it's not always necessary, but it is sometimes it is necessary. And I think don't be frightened to refer for imaging. If someone's not improving. The one thing that I and it's different in every country and our health systems are all different. But here in Australia as physios, we can refer for imaging, but I if I'm if I'm suspicious that there's a red flag, that's a medical thing that's outside my scope of practice, I will refer them to the GP for the GP to refer for imaging. And the reason for that is I if you refer for imaging, you need to be able and confident to tell the patient the results of their imaging and interpret them and then refer them on for appropriate care now, for those medical things. I think as physios that's way outside our scope of practice and we shouldn't be you know, if the scan comes back with cancer, like we can't that's way outside our scope and we shouldn't be having to to explain those results to patients, I think only refer for imaging yourself with your confidence of what you'll be able to interpret those findings. So don't be afraid to refer to the doctor. Some patients often need pain relief as well or anti inflammatory. So that's, you know, if you're not getting improvements in that four weeks, you may need to refer them to the doctor to get pain relief or anti inflammatory medication. Things like injectables again, we don't want to inject give people lots of injections but we know that the hip joint is often sign up at green flame. So you know a judiciously used cortisone injection can be helpful in in some cases. So I think it's been not afraid to refer on you know, when you just turn the video off, when you need when you need to, to, you know to those other things and then surgery is probably your last resort, but There are a small number of people who will potentially need surgery as well. So, but you wouldn't actually be looking at surgery until you really finish this full three months of rehab. 20:09 Yeah, that all makes perfect sense. And now as we kind of start to wrap things up, where there, is there anything that you know, we didn't cover, that you would really like the listeners to know, or to take away, whether that's from the literature or from your experience when it comes to hips? 20:31 Yeah, I think, look, I think we've covered most things. But I think what it is, is just being really confident to prescribe a good quality exercise program. And if you don't feel like you have the knowledge or skills to do that, don't be scared to either refer to a colleague who who might have more knowledge or skills, or to, you know, to look up the evidence with, you know, that the evidence is has really grown in the last couple of years. And we published a consensus paper in V jsme, 2020. That was a consensus paper on what physio treatment for hip pain in young and middle aged adults would be. So that's a really good resource, it's got some some good examples in that paper of the types of exercise that you should be doing. And then my colleague from the US might Raman also lead a consensus paper in that same series on the diagnosis and classification of hip pain. So that's another really good resource that you can go to that will help you clarify the different diagnosis in the hip and what what what sort of things you can do to confirm your clinical suspicion and your diagnosis. 21:34 Perfect. And now, you will also be speaking at the fourth World Congress of sports, physical therapy in Denmark, which is August 26th, to the 27th, you're doing to sort of 15 minute 15 minute talks repeated twice. So one talk repeated twice. On the second day of the conference, can you let the listeners know a little bit more about that. And if you have any sneak peak that you want to share? 22:04 Yeah, so I'm going to be doing that talk in combination with a with a great colleague of mine, a Danish colleague, Julie Jacobson. And so we're going to be talking about hip pain in women specifically. So looking at the common causes of hip pain in women and as as physios, or physical therapists, what we should be doing to manage to manage that, because it's a congress of sports, physio, or sports, physical therapy. It'll be slanted probably towards the younger, more athletic population. But I think there'll be some really great takeaways for anyone treating women in particular with hip pain. So we're going to be really, I think, trying to focus on what it is about women with hip pain that's unique and different to men, and really helping the therapist develop a rehab program that really targets the things that are important for women. So the impairments that women have the physical impairments, but also really targeting some of those, you know, we've got to think about the biopsychosocial model. So some of the psychological challenges that people with hip pain have that we've sort of touched on in terms of being fearful to move, but then the social challenges too, because we know that we do live in a gendered environment. And it's no different for women with hip pain, where they might face additional barriers to, you know, in this the way society is constructed to be able to access the best care. So it's also helping helping the clinician really become an help patients navigate some of those challenges as well. 23:27 I look forward to it. It sounds great. Now are what is there anything that you're looking forward to at the conference in Denmark? Have you looked through the program? Are there talks that you're looking forward to? 23:40 I look, there's there's going to be so many great talks there. Like it's such a I can't believe how many how much they've packed into two days, like for two day program, I'm actually really excited. by so many of the different tools, I think the thing I'm most excited about is after two years, it'll be nearly three years by then that we've actually been able to see each other face to face, just to have the opportunity to catch up face to face with so many great colleagues that I've worked with before, but also meet new colleagues as well, and have the chance to travel to beautiful Denmark. You know, I haven't been to the conference venue, but it looks amazing being on the coast. In summer, it's going to be beautiful. I know the conference Organizing Committee has got a great social program as well organized and the Danish conference dinners are always a highlight, I think of any program. So I'm really excited about that as well. Yeah, I just I just can't wait. 24:31 Yeah, it's it. You have the same answer that so far everyone has said as they just can't wait to be in person and to network and to hang out with people and to meet new people. So you're right along with everyone else that I think a lot of the other speakers that are going to the conference, and now where can people find you if they have questions, they want to see more of your research, where can they go? 24:55 So, um, so I'm on Twitter, so my Twitter account is at Joanne L. him. So L is my middle initial. And you're welcome to send me a message via Twitter. But you can also contact me via email. So my email address is the letter j.camp@latrobe.edu.au. And then our sports medicine allotropes sports and exercise Medicine Research Center has a has a webpage and a blog page where a lot of our research is highlighted there as well. So if you just Google up Latrobe, Sport and Exercise Medicine Research Center, that's the first thing that will pop up as well. And we have a lot of, you know, a lot of really good information. We've got a really our Research Center has a really strong knowledge translation arm and so a lot of my colleagues, which credit to all my colleagues who work in this space, have developed a lot of really great resources to infographics, videos of exercises, lots and lots of different things that can be found on our on our research, our centers, webpage and blog page as well. So lots of good resources there. 25:57 Excellent. And we'll have links to all of that in the show notes for this episode at podcast at healthy, wealthy smart.com. So one click will take you to all of the resources that that Joe just mentioned. And last question that I ask everyone is knowing where you are now in your life and in your career? What advice would you give to your younger self? So maybe straight out of physio I pick pick a year, any year you'd like? 26:22 It's great question. And it's funny because I was actually talking to my son's girlfriend the other night, who's at university, and she's finding it stressful and hard. And I actually shared with her something that I'm not afraid to share that I actually nearly failed my first year of university, because I was too busy enjoying the social aspect of uni life. And I think what I would say to my young, and that stressed me out and really upset me at the time. And I think what I would say to my younger self is if you don't get it right the first time. And if it takes you a little while to find your space, that that's actually okay, because it's about the long journey, and you'll get there eventually. And so if you hit hurdles and bumps and you don't, you're not always successful every time, it actually doesn't matter. Because as long as you keep on trying, you'll you'll get there in the end. So don't don't stress about failure. It's about what you learn from that failure and how you adapt and change what you do. 27:12 What excellent advice. Thank you so much. And thank you for coming on to the podcast. This was great. And I think the audience now has a better idea of what to do with their patients when they have hip pain. And if they don't, they can head over to Latrobe, they can go over to the website and get a lot of great resources from from you all and also look up a lot of your research. And if we can also put your Research Gate. Yeah, we can put that up in the show notes as well if that's okay, so that way people can kind of get a one stop shop on all of your research because it's extensive. So we'll have that up there as well. Thanks, Karen. Thank you so much. And everyone. Thanks so much for tuning in listening and we hope to see you in August in Denmark at the fourth World Congress Sports Physical Therapy again, that's August 26 and 27th. If you haven't registered, I highly suggest you get on it and hopefully we'll be able to see you in Denmark. So I look forward to seeing you then. And everyone have a great couple of days and stay healthy, wealthy and smart.
Hello! This week we're talking about health inequalities. The evidence has long been clear that your life circumstances determine how long and how healthy your life will be. Over the last decade, life expectancy has stalled and the pandemic has amplified existing inequalities. In the face of this bleak prognosis, we look for optimism with the leading academic on the topic Professor. Sir Michael Marmot, who tells us about the social factors that determine health; Christina Gray, Director for Communities and Public Health for Bristol on the importance of community cohesion; and Chris Gray, Principal Research Fellow at IPPR about the links between health and economic prosperity.Plus: Geoff talks Star Wars and Ed tells us about his run-in with the Chancellor.Show notes:Ed's speech in the Commons: https://www.youtube.com/watch?v=PjtXbwi-2QgFair Society, Healthy Lives (The Marmot Review, 2010): https://www.instituteofhealthequity.org/resources-reports/fair-society-healthy-lives-the-marmot-review Marmot Review 10 Years On (2020): https://www.instituteofhealthequity.org/resources-reports/marmot-review-10-years-on Build Back Fairer: The COVID-19 Marmot Review (2021): https://www.instituteofhealthequity.org/resources-reports/build-back-fairer-the-covid-19-marmot-review Ambition Lawrence Weston: https://www.ambitionlw.org/ IPPR: Introducing the Commission on Health and Prosperity (2022): https://www.ippr.org/research/publications/health-and-prosperity See acast.com/privacy for privacy and opt-out information.