Genetic disorder, "trisomy 21"
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This week, Drewby and Yergy head across The Pond to Blackpool to discuss the case of Debbie Leitch, a young woman with Downs Syndrome living with her mother, Elaine Clarke, in a terrace house in the town South Shore district. Rather than take care of her daughter's needs, Elaine spent Debbie's benefits on item for herself. She allowed her to live in filth, covered in scabies, and waste away to a mere 52 pound before she finally passed from the neglect. Support Our Patreon: https://www.patreon.com/themiserymachine PayPal: https://www.paypal.me/themiserymachine Join Our Facebook Group: https://t.co/DeSZIIMgXs?amp=1 Instagram: miserymachinepodcast Twitter: misery_podcast Discord: https://discord.gg/kCCzjZM #themiserymachine #podcast #truecrime Source Materials: https://www.findagrave.com/memorial/257144155/deborah-ann-leitch#:~:text=Memorial%20www,Blackpool%20Unitary%20Authority%2C%20Lancashire https://www.itv.com/news/granada/2022-02-24/mum-who-allowed-disabled-daughter-to-die-in-squalor-jailed https://www.independent.co.uk/news/uk/crime/blackpool-neglect-death-deborah-leitch-b1821515.html#:~:text=suffering%20with%20an%20extensive%20scabies,the%20time%20she%20passed%20away https://disability-memorial.org/deborah-leitch#:~:text=Deborah%20Leitch https://www.blackpoolgazette.co.uk/news/people/is-that-all-my-girls-life-was-worth-3603706#:~:text=In%202014%2C%20Clarke%20moved%20her,got%20to%20know%2C%20and%20cheeky%E2%80%99 https://www.blackpoolgazette.co.uk/news/crime/lazy-and-selfish-blackpool-mum-starved-disabled-daughter-to-death-in-dark-faeces-covered-room-3584397#:~:text=Ms%20Muggerridge%20said%3A%20,never%20gave%20it%20to%20her https://www.sussexexpress.co.uk/news/crime/hastings-dad-blasts-vile-and-evil-ex-wife-after-she-is-jailed-over-daughters-death-3591852#:~:text=The%20heartbroken%20dad%20said%20Clarke,her%20mum%20by%20social%20services https://www.blackpoolgazette.co.uk/news/crime/coroner-probes-death-of-debbie-leitch-as-disgraced-mum-snubs-inquest-4824342#:~:text=Debbie%20Leitch%2C%2024%2C%20who%20had,South%20Shore%20in%20August%202019 https://www.blackpoolgazette.co.uk/news/people/woman-who-starved-to-death-was-unlawfully-killed-inquest-finds-4827952#:~:text=extended%20family https://www.lbc.co.uk/news/mum-who-starved-daughter-to-death-in-squalid-bedroom-jailed/#:~:text=Elaine%20Clarke%2C%2049%2C%20,smelled%20of%20death https://www.dreamindemon.com/community/threads/no-justice-woman-slowly-starved-her-24yo-down%E2%80%99s-syndrome-daughter-to-death-in-filthy-room.130767/#:~:text=,5%20kg https://www.independent.co.uk/news/uk/crime/blackpool-neglect-death-deborah-leitch-b1821515.html#:~:text=known%20as%20Debbie%2C%20deceased%20inside,the%20address https://news.sky.com/story/debbie-leitch-lancashire-mother-49-admits-killing-her-24-year-old-daughter-12524449#:~:text=Elaine%20Clarke%2C%2049%2C%20initially%20pleaded,unlawful%20killing%20of%20Debbie%20Leitch https://www.facebook.com/itvnews/posts/debbie-leitch-24-who-was-born-with-downs-syndrome-was-discovered-dead-at-her-fam/934370962058913/#:~:text=Facebook%20www,in%20Blackpool%20in%20August%202019 https://uk.news.yahoo.com/tragic-dad-never-got-answers-175449564.html?guccounter=1&guce_referrer=aHR0cHM6Ly9jaGF0Z3B0LmNvbS8&guce_referrer_sig=AQAAANLxEcRYo2vZy8pfYnw9_QkSvJv8HowDM7Z2YyrkXypHUneTh7dgfHLt4U_wVgzVou_JFTo1jfSSLXaC852C30uia88FGL1sLL5HEldjtO1yFugJM-kuxkFxo83hWwEH-X4Sa7ckQdyN8XWGcIILih7CQxpuvTo6mW1u9Zs96q7h https://www.facebook.com/BBCLancashire/posts/a-coroner-says-debbie-leitch-died-from-the-effects-of-her-severely-emaciated-and/1073169711479544/ https://crimeline.co.uk/wp-content/uploads/2022/02/R-v-Elaine-Clarke-sentencing-remarks-240222.pdf? https://www.facebook.com/share/v/1B4R4d8BeQ/?mibextid=wwXIfr https://www.bbc.com/news/uk-england-lancashire-60560700
Episode 37 - Ashley Matthews chats about her son, Milo and his dual diagnosis of Hirschsprung's and Downs Syndrome, as well as some handy tips when it comes to performing enemas, belly massages and irrigations. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only. The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees. We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.
Which stories made the cut for this week's News Round-Up broadcast? Here's a sample from the early minutes of the program: --A man was arrested at JFK Airport in New York on Sunday following an alleged attempt to firebomb a branch office of the U.S. Embassy in Tel Aviv. --The Department of Homeland Security said Wednesday that it had arrested an illegal immigrant who delivered a racially tinged threat to President Trump over his aggressive border and deportation crackdown. --FBI Director Kash Patel said that he has been forced to divert agents to investigate copycats of the potential threats to President Trump as a result of former FBI Director James Comey's 8647 social media post. --Last weekend, dozens of protesters in Wichita, Kansas, clogged the downtown sidewalks chanting James Comey's slogan and not a single person was arrested for threatening President Trump. --Scott Shara is the father of 19 year old Grace Shara who had Downs Syndrome and died in October of 2021. A jury trial (Shara v. Ascension Health) on Monday, June 2 will address the alleged wrongful death of Grace and the results could have broader implications for accountability in U.S. health care. --Hamas has rejected the latest U.S. proposal for a cease-fire and hostage release unless changes are made to the agreement drafted by U.S. Envoy Steve Witkoff. --Iran will not consider temporarily suspending uranium enrichment to secure a nuclear deal with the U.S. --Iranian officials on Thursday met with their Chinese and Russian counterparts to discuss ongoing nuclear negotiations between Tehran and the Trump administration.
Which stories made the cut for this week's News Round-Up broadcast? Here's a sample from the early minutes of the program: --A man was arrested at JFK Airport in New York on Sunday following an alleged attempt to firebomb a branch office of the U.S. Embassy in Tel Aviv. --The Department of Homeland Security said Wednesday that it had arrested an illegal immigrant who delivered a racially tinged threat to President Trump over his aggressive border and deportation crackdown. --FBI Director Kash Patel said that he has been forced to divert agents to investigate copycats of the potential threats to President Trump as a result of former FBI Director James Comey's 8647 social media post. --Last weekend, dozens of protesters in Wichita, Kansas, clogged the downtown sidewalks chanting James Comey's slogan and not a single person was arrested for threatening President Trump. --Scott Shara is the father of 19 year old Grace Shara who had Downs Syndrome and died in October of 2021. A jury trial (Shara v. Ascension Health) on Monday, June 2 will address the alleged wrongful death of Grace and the results could have broader implications for accountability in U.S. health care. --Hamas has rejected the latest U.S. proposal for a cease-fire and hostage release unless changes are made to the agreement drafted by U.S. Envoy Steve Witkoff. --Iran will not consider temporarily suspending uranium enrichment to secure a nuclear deal with the U.S. --Iranian officials on Thursday met with their Chinese and Russian counterparts to discuss ongoing nuclear negotiations between Tehran and the Trump administration.
Join Rachel, Sarah and Lucy as we celebrate those people who change the world, be it campaigning for the right to medical treatment, supporting other parents, breaking down barriers, or just making a nuisance of themselves to get the voices of disabled people heard. On this week's episode we open up by reflecting on some of the world changers we know*, and reflect on why and how this is different for the disability community. Rachel is then joined by Hannah Deacon, whose dedication to campaigning for patients' rights succeeded when the law changed on 1 November 2018, which led to cannabis becoming legal as a medical treatment. Her successful campaign on behalf of son Alfie Dingley, who lives with a rare and severe form of epilepsy, led to his doctors receiving the first schedule one license to prescribe whole-plant cannabis in the UK. You can find more about Hannah and her work at her website. *As promised - Sarah's World Changers: Lynne Elwell who works with Julie Stanfield who is the CEO at In Control and developed Partners In Policy Making Jayne Leeson - CEO at Changing Our Lives Lynne James Jenkinson - CEO at North West Training and Development Team (NWTDT) also a parent to many including an amazing young woman with Downs Syndrome. Robert Punton - poet and disability rights campaigner, who Sarah Met through The Alliance for Inclusive Education Joe Whittaker - Joe died a couple of years ago but was a passionate campaigner and all round incredible human. He was a lecturer at Bolton uni and included MANY people who would not have had access to higher education without him. Martin Routledge - convener at Social Care Future and an EXCELLENT Elvis impersonator Janet Cobb - started the learning disability email network many many years ago. Was at NWTDT and worked with Lynne Elwell for a long time Dave Hingsburger- one of the most influential people I have ever heard speak -Friends Not Family Samantha Clarke - Learning Disability England Debra Moore - first met when she was the health lead for Valuing People. Now provides consultancy. She is bloody brilliant and well worth connecting with Helen Laverty - started Positive Choices many years ago. The Trio also discuss Single Case Experimental Design which you can find more about here or by watching this video. Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We'd love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick', then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. We're so happy that The Skies We're Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here… Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
EZ taking a day off to recover from illness.These segments are lifted from EZ's Patreon, and include:*So, right when I started this show, all the stories I was going to discuss went "kaput." So, I had to improvise.*First, I delved into the latest BFNN article that paints me as a lunatic again, lol.*Kenney checks in to plead with me for something.*Lizzo isn't quitting music.*A discussion about when it's ok to make fun of someone's appearance.*A Facebook fight on the EZSP Fan Page.*EZ finally gets to the Rangers/ Devils hockey fight.*The time Brett Gallant told EZ he isn't fighting anymore...*Elizabeth Hurley addresses the rumors that she took Prince Harry's virginity.*Asshole gets beat up at Disney World for making fun of a kid with Downs Syndrome.*Why would schools opt to send kids home during the eclipse?*Blind people are annoying as fuck.*Sad story of 7 year-old selling lemonade to pay for mother's tombstone. Grandmother seems like a former Zaniac*Hot chick can't get enough kid penis.*Gene Simmons makes up some dumb story about how selling the rights to Kiss for $300 million isn't about money.*Dog that looks like "Baxter" from Anchorman is found 2000 miles from home, 8 months later.Support this podcast at — https://redcircle.com/the-eric-zane-show-podcast/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
For this episode of my Podcast, I am joined for a chat by my lovely friend and actress Sally Phillips. She is currently starring in a wonderful new BBC Sitcom show called Austin which you can now watch on BBC I-Player! We chatted about the recent final Bridget Jones Movie Mad About the Boy & her character Shazza. We also chatted about the world of learning disability and why we need to see more people with a learning disability being seen positively in the media like TV and film & she talked about her own experience of becoming a mother to her son Olly who has Downs Syndrome and what he has achieved!
For this episode, I chatted with my lovely friend Hayley Newman & her wonderful daughter Natty who has Downs Syndrome. They chatted with me about their relationship as mum and daughter, we chatted about how important it is to see people with a disabiliy in the media like Natty and myself. We also talked about our favourite ice-cream flavours, chatted about the film Frozen and our favorite colours!
Episode 30 - Isabelle Schnidag, the Co-Founder of REACH HD joins me to talk about how the charity started and why the dual diagnosis of Hirschsprung's and Downs Syndrome have a personal connection to her. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only. The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees. We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.
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We begin this episode with the inspiring story of Mason Doherty, a young man with Downs Syndrome, who went 2 for 2 shooting at the end of the St Peters High School basketball game in Minnesota. Not only did only did his own team rush the court in celebration of him, but the losing opposing […]
I chatted to my friend Helen Shiers. Helen is a wonderful Mum to her daughter Thea who has Down's syndrome. She shared with me about her experiences of becoming a mum and about her experience of being a mum to Thea and we talked parenting and disability representation and we talked about disability and media. She is also a Co-Founder of a wonderful charity called PSDS which aims to support families who have children who have Downs Syndrome. website - https://www.psds.info/
Go back and take another look at that SMILE! Max got you—didn't he? This week's interview with his grandparents—Bev and Mike McGowan—is really about Max. And it comes as no surprise to those who have a Downs Syndrome family member—these special blessings of God—bring incredible JOY to family and those around them. Easy?NO WAY!A blessing? FOR SURE!
Katie McElroy, owner of All Good Things in Northfield, talks about her business that features products made by individuals with intellectual disabilities. She has two part-time employees with Downs Syndrome, Dani and Anna. Dani shared her hand-made ‘Be Kind’ bracelets with KYMN staff.
Katie McElroy, owner of All Good Things in Northfield, talks about her business that features products made by individuals with intellectual disabilities. She has two part-time employees with Downs Syndrome, Dani and Anna. Dani shared her hand-made 'Be Kind' bracelets with KYMN staff.
In in her book ‘Raising Resilience the wife, mother and businesswoman explains the challenge her family faced when their twins were delivered prematurely in 2021. One son – Freddie - had Downs Syndrome and spent the first year of his life in hospital which she found very difficult to cope with mentally.
BEST OF HMS PODCASTS - FRIDAY - December 20, 2024 Learn more about your ad choices. Visit podcastchoices.com/adchoices
BEST OF HMS PODCASTS - FRIDAY - December 20, 2024 Learn more about your ad choices. Visit podcastchoices.com/adchoices
Send us a textThis Father And Son Team-Up Wants To Spread Happiness One Pair Of Crazy Socks At A Time#entrepreneur #crzysocks #socks #downsyndrome #happiness #love #autism John and Mark X. Cronin are the father-son team that created John's Crazy Socks, a social enterprise with a mission to spread happiness. They bootstrapped their business into the world's largest sock store. John is not only a business owner, but he has Down syndrome. Every day, John and Mark show what people with differing abilities can do – more than half theircolleagues have a differing ability. And they show their gratitude through their Giving Back program that has raised nearly $800,000 for their charity partners. Most of all, they are spreading happiness one pair of socks at a time.Website: https://johnscrazysocks.com/Facebook: https://www.facebook.com/johnscrazysocks/Instagram: https://www.instagram.com/johnscrazysocks/Linkedin: https://www.linkedin.com/company/john-s-crazy-socks/Pinterest: https://www.pinterest.com/johnscrazysocks/TikTok: https://www.tiktok.com/ @Johnscrazysocks X: https://twitter.com/JohnsCrazySocksYoutube: https://www.youtube.com/channel/UChQzvQju2SQiW9rIf5JNsVQThanks for tuning in, please be sure to click that subscribe button and give this a thumbs up!!Email: thevibesbroadcast@gmail.comInstagram: https://www.instagram.com/listen_to_the_vibes_/Facebook: https://www.facebook.com/thevibesbroadcastnetworkLinktree: https://linktr.ee/the_vibes_broadcastTikTok: https://vm.tiktok.com/ZMeuTVRv2/Twitter: https://twitter.com/TheVibesBrdcstTruth: https://truthsocial.com/@KoyoteFor all our social media and other links, go to: Linktree: https://linktr.ee/the_vibes_broadcastPlease subscribe, like, and share!
Dr. Andrew Barron is a scholar of theology and disability and the author of the book Human Difference: Reflections on a Life in Proximity to Disability. He has taught at The Centre for Spirituality, Disability, and Care at Martin Luther University College and previously taught disability and theology at Wycliffe College at the University of Toronto. -- If you've enjoyed this content, please subscribe to my channel! Support Theology in the Raw through Patreon: https://www.patreon.com/theologyintheraw Or you can support me directly through Venmo: @Preston-Sprinkle-1 Visit my personal website: https://www.prestonsprinkle.com For questions about faith, sexuality & gender: https://www.centerforfaith.com Learn more about your ad choices. Visit megaphone.fm/adchoices
Bob talks with Daniel Schachle about his wife's pregnancy and the miraculous healing of his son “Miracle Mikey” in utero, which led to the beatification of Blessed Michael McGivney, founder of the Knights of Columbus. Support the show
Send us a textIn today's episode, I interview Aaron Johnson, the director of the short film "The 17%," a documentary about Colette Divitto, a young woman with Downs Syndrome and her successful cookie business. The film received the silver medal in the documentary category at the 2024 Student Academy Awards.Listen to hear about the some of the people that Collete employs in her business, some of the films that inspired the world of this film, and some of the biggest challenges of creating the visual world of the film.Books mentioned in this episode include:The Old Man and the Sea by Ernest HemingwayArt of Living by EpictetusFilms mentioned in this episode include:"The 17%" directed by Aaron JohnsonThe Perks of Being a Wallflower directed by Stephen ChboskyGood Will Hunting directed by Gus Van SantCrip Camp directed by James Lebrecht and Nicole NewnhamThe Peanut Butter Falcon directed by Tyler Nilson and Michael SchwartzBaby Driver directed by Edgar WrightThe work of Denzel WashingtonGladiator II directed by Ridley Scott"The 17%" is waiting to hear back from multiple festivals and is eligible for the 97th Academy Awards.You can follow Aaron on Instagram @ajhoops and the film @the17percentfilm.
Episode One – Emma's story – How I became an older Mum to a daughter with Downs Syndrome.
Sarah Casey has built a thriving business selling sweet treats from her bun truck at farmer's markets, festivals and parties. Sarah has Downs Syndrome, and she, along with her parents Tommy and Annette want to show other young people with the condition that it doesn't need to hold them back
Join us as we explore love, sex, and consent for individuals with intellectual or developmental challenges. We discuss important considerations, promote understanding, and share our general thoughts. Tune in for an enlightening conversation, and afterward, let's continue the dialogue over a fun coffee meetup. Everyone's welcome!Interested or down right fascinated? Check out what Natassia is reading here:https://amzn.to/3LTeZsOMusic by:Golden Hour by Vlad Gluschenko https://soundcloud.com/vgl9
Healer Heal Yourself, Reduce Burnout, Discover Your Creativity While You Heal Others
In this episode Aanchal shares what the Arts especially dance, mean to her and how she started many art-based programs for people with Downs Syndrome, Parkinsons', and Post-Partum Depression in addition to writing a children's book for kids with anxiety, all while being a medical student. Aanchal Shah is a member of the FSU COM Class of 2025. She has been a dancer ever since she was 2 years old and enjoys performing, competing, and choreographing. Aanchal graduated from the University of Florida in 2021 with a B.S. in Psychology as well as a Certificate in Dance in Medicine. She spent all four years of her undergraduate career researching the connection between the arts and medicine through the Center for Arts in Medicine at UF. She founded Down to Dance: a free evidence-based dance program to help improve the fine motor skills, cognitive functioning, and emotional/social well-being of individuals with Down Syndrome. Aanchal now serves as a senior advisor for Down to Dance and has helped it grow from a local organization into a national organization, providing free workshops to 58 different locations across the nation. In medical school, Aanchal worked with faculty, the Chapman Foundation, and 16 like-minded medical students to help create the FSU COM Arts in Medicine Volunteer Program (AIM). During AIM's inaugural year, Aanchal and the AIM board worked hard to develop partnerships and community programs such as the Dance for Parkinson's Program, Music for Alzheimer's Program, and Visual Arts program for pediatric and geriatric populations. As senior advisor, she works closely with each new board to ensure the quality, expansion, and sustainability of AIM. AIM has expanded to several locations across Florida including Orlando, Fort Pierce, Pensacola, Sarasota, and Marianna. Aanchal recently collaborated with the Orlando Ballet to create dance tutorials in support of maternal mental health. The Movin' with Momma series are dance tutorials that moms can do from the comfort of their own homes while holding their babies in baby carriers. These free and accessible dance workshops were published on the FSU COM AIM Dance Database in May 2024 for moms suffering from postpartum depression/anxiety.Aanchal's passion for arts and medicine became the driving force behind her published children's book “Dr. Didi's Guide to Anxiety-An Art Based Approach” available on Amazon. This book helps teach children about evidence-based art methods that can be used to help with symptoms of anxiety. Book: https://a.co/d/8siF9AS Aanchal ShahM.D. Candidate | Florida State University College of Medicine | Class of 2025FSU Women's Health Day Mental Health DirectorFormer President of Dermatology Interest GroupFounder of Arts in Medicine Volunteer Program https://med.fsu.edu/aim/home
Joe and Mark take a strolllllllll down memory lane. We're talking studios, locations, and the future! The current studio time is winding down and the boys are looking for a new home. The boys discuss the perils of reason, language and beliefs! PLUS - beefing up the great people of Scotland. It's Tuesdays! Our Stuff: - http://www.patreon.com/tuesdays - youtube.com/tuesdayswithstories - Check out Joe List on Punch Up Live for tour dates, videos, buying tickets and more! https://punchup.live/joe-list - Support the show and sign up for a 1-dollar-per-month trial period at https://www.shopify.com/tuesdays - Support the show and try Blue Chew for free. Just pay $5 shipping. Head to https://www.bluechew.com and use promo code TUESDAYS
A Little Wray Of Sunshine: Inspirational stories from everyday people
In this episode, Mike Pickett and I visit with his son Conner who has Downs Syndrome. As you listen, you will feel the love they have for one another and the very special bond they have developed over the years. Mike wouldn't have it any other way... "If you had to pick a handicap for you, or for your child, which one would you pick... you'd pick the one you got because you know what that's like." I admire Mike for the father he is to Conner, through the good times and the hard times, they have each other and that's what's important... "Try to let those bitter moments roll right off your back and get through them and keep right on trucking."
Rima Staines is an artist whose work straddles myth, magical realism and the folk arts. Her visual world is an umber and madder-infused chapel of misfits and magicians, story-rich and alchemical. Her paintings, which feel both ancient and familiar at once, have been exhibited and published internationally. In 2018 she was a finalist in the 'Best Artist' category of the World Fantasy awards.Rima has a long-held fascination with the idea of the liminal - that which lies at the edge of culture and society as well as the literal boundaries between one place and another, both metaphorical and real - and with the power of art that comes from that place. Her work is a kind of “Iconography of the Otherworld”. She lives in the south of England. Rima's Links: www.rimastaines.comwww.patreon.com/rimastainesInstagram: @tilsamkaFacebook: facebook.com/rima.stainesWe talked aboutRima's writing - Art and the Landscape of Belonging – join her Patreon to read The changes required at midlife Creativity and daily life a balance between desire and necessity The beauty of particular difference Her drive and need for authenticity The Otherworld and how we can access itNeurodiversity – Epilepsy, Downs Syndrome and autism. Motherhood and creativity Neurology and creative magic Her visual art which she describes as “Art in a minor key” SynaesthesiaJOIN LUCY H. PEARCE ON PATREON TO LISTEN TO THE EXTENDED EPISODE.Purchase Lucy's Masterclass Becoming VisibleFollow Creative Magic on Instagram: @CreativeMagicPodcastYour host Lucy H. Pearce – www.lucyhpearce.com Instagram: @lucyhpearce FacebookWomancaft Publishing Hosted on Acast. See acast.com/privacy for more information.
In this episode of Raising Joy, we celebrate diversity and inclusion at Cook Children's with Jacob Hall and Tara Drake, co-leaders of the PRIDE+ Employee Resource Group (ERG). The PRIDE+ ERG fosters a supportive community for LGBTQ+ employees and allies at Cook Children's. We'll discuss the importance of ERGs in the workplace, the initiatives of the PRIDE+ ERG, and how Cook Children's is creating an inclusive environment for all.Join us as we learn about:The mission and goals of the PRIDE+ ERGThe benefits of ERGs for both employees and employersHow Cook Children's is supporting LGBTQ+ employeesWays to get involved with the PRIDE+ ERG and promote inclusion in the workplaceThis episode is a must-listen for anyone who wants to learn more about creating a diverse and inclusive workplace culture.
This episode of Raising Joy tackles a tough but crucial topic: youth suicide prevention, particularly among young people of color. Kristen Pyrc, M.D. welcomes Martha and Chris Thomas, founders of The Defensive Line, a nonprofit on a mission to end this epidemic.Martha and Chris tragically lost their daughter, Ella Elizabeth Thomas, to suicide at the age of 24. Inspired by Ella's vibrant spirit and the need for change, The Defensive Line is transforming how we communicate and connect about mental health.Join us for a powerful conversation about:Breaking the stigma around mental health in communities of colorEffective communication strategies to support young peopleBuilding a world where mental health resources are accessible and inclusiveThis episode is a must-listen for anyone who wants to empower themselves and others to have open conversations about mental health and create a future filled with hope.Learn more about The Defensive Line here: https://thedefensiveline.org/
In this episode of Raising Joy, we explore the incredible resource of MHMR and Help Me Grow North Texas. Miranda Holmes & Arrenia Thomas join us to discuss how Help Me Grow empowers parents and caregivers by connecting them with a network of specialists and community-based services to support their child's healthy development.We delve into:Who Help Me Grow North Texas can supportThe different types of resources and services availableHow the program can address both general parenting questions and developmental concernsThe benefits of collaboration across various sectorsAnd much more!This episode is a must-listen for any parent or caregiver seeking guidance and support in raising joyful, thriving children.
In this episode, we explore the unique educational environment of Jane Justin School at Cook Children's Child Study Center.Our guest, Tracie Mann, Ph.D., LBA, shares how Jane Justin School supports children aged 3-21 with developmental and learning disabilities.We'll delve into the school's philosophy, which emphasizes individualized instruction, small class sizes, and a focus on mastering skills. If you're interested in learning more about how Jane Justin School empowers students with complex needs to achieve their full potential, this episode is for you!Learn more about the Jane Justin School here: https://www.cookchildrens.org/services/child-study-center/jane-justin-school/
Warning: This episode includes conversation about youth self-harm and suicide. Recent news of suicides among teens in North Texas has sent shockwaves through our community. Raising Joy hosts Kristen Pyrc, M.D., and Wini King take a moment to acknowledge the heartbreak being felt by so many and to share resources for healing. Help is available.If you or someone you know is struggling, speak with someone today by calling 988 or visiting 988lifeline.org.Available 24 hours. Languages: English, Spanish. Additional resources: Mental Health America of Greater Tarrant Countyhttps://mhatc.org/loss-team/ GriefShareFind a Group - GriefShare Survivors of SuicideSuicide Loss Support Groups | Alliance of Hope The WARM Place
In this episode of Raising Joy, we delve into the critical issue of physician burnout with Kirk Pinto, M.D., a pediatric urologist, and Sara Garza, M.D., a primary care physician. These leaders in physician well-being at Cook Children's join us to shed light on this growing concern.We'll explore the signs and symptoms of burnout, its impact on doctors, families, and patient care, and most importantly, strategies for prevention and management. Drs. Pinto and Garza will share practical self-care tips, the role of health care institutions in fostering well-being, and resources available to physicians struggling with burnout.Whether you're a parent supporting a future doctor or a health care professional yourself, this episode offers valuable insights and hope for creating a more sustainable and fulfilling medical career.
in an exclusive and rare deep personal insight, Phil Coulter opens up to the two Mary's about his extraordinary life including his phenomenal career success, family life including with his sons diagnosis of Downs Syndrome, two almost identical personal tragedies, the state of Eurovision, his love for rally driving and the divisive Irish rugby anthem ‘Irelands Call' which he wrote.Phil Coulter has amassed 23 platinum discs, 39 gold discs, 52 silver discs, and is one of the biggest record sellers in the island of Ireland with millions of record sales. His well-known compositions include "The Town I Loved So Well", "Puppet on a String", "Congratulations", “The Old Man” and the Elvis Presley hit “My Boy”. Hosted on Acast. See acast.com/privacy for more information.
Our guest this week is Allan Turner of Mansfield, TX proprietor of Turner Insurance Group and father of three including one with Down Syndrome.Allan and his wife, Ebony, have been married for 23 years and are the proud parents of three children: Anaiah (19), Jael (17) and Isaiah (10), who has Downs Syndrome.Allan owns an insurance brokerage agency, which is how he supports his family. Not satisfied with the level of life and health insurance available to families touched by disability, Allan has been an outspoken advocate to create new products that meet the unmet needs of families impacted by disability. Allan also reflects on some of the organizations that have played an important role in his family, including; the Black Down Syndrome Association, the Down Syndrome Partnership of North Texas, Kinder Frogs at TCU and Special Olympics.It's an inspiring conversation on this episode of the SFN Dad To Dad Podcast.Show LinksEmail - aturner@turnerinsgroup.netWebsite – https://www.turnerinsurancegroup.net/LinkedIn - https://www.linkedin.com/in/allan-turner-9249871b6/Down Syndrome Partnership of North Texas - https://www.dspnt.org/Black Down Syndrome Assn - https://www.blackdownsyndrome.org/KinderFrogs School at TCU - https://coe.tcu.edu/lab-schools/kinderfrogs-school/index.phpCalstar Group https://calstarone.comSpecial Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channe...Please support the SFN. Click here to donate: https://21stcenturydads.org/do...Special Fathers Network: https://21stcenturydads.org/SFN Dads Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Discover more about the Dads Honor Ride 2023 - https://21stcenturydads.org/2023-dads-honor-ride/Find out about Horizon Therapeutics – Science and Compassion Working Together To Transform Lives. https://www.horizontherapeutics.com/
In this episode of Raising Joy, we delve into a topic close to many parents' hearts: the mental health of children with complex medical needs. Our expert guests are Carla Morton, Ph.D., and Marsha Gabriel, Ph.D., neuropsychologists from Cook Children's. We'll explore:· What is neuropsychology and how does it relate to children's health?· Common complex medical conditions and associated mental health challenges.· Warning signs parents should watch for in their children.· Practical strategies parents can use to support their children's mental well-being at home.· The range of emotions parents of children with complex medical needs may experience.· Dr. Morton's personal experience as a parent of a child with special needs.· Things parents might not realize about raising a child with complex medical needs.
This episode of Raising Joy dives into the unseen but crucial work of building a strong and resilient community for children and families. Hosts Wini King and Dr. Kristen Pyrc welcome Breanna Anderson and Jammie Josephson, managers of the ACE's Team at the Center for Community Health at Cook Children's.The conversation explores:· Understanding ACES: They'll break down what Adverse Childhood Experiences (ACES) are and their impact on children's health.· The ACE's Team in Action: Learn about the team's mission and the programs they offer to support parents and families.· Building Hope: Breanna and Jammie will share a success story that highlights the positive impact of their work.· The Power of Community Outreach: Discover why taking these resources directly into communities is essential for building resilience.
Lessons learned early last a lifetime. -Julie Beckham aka “Ms. Money” Not everyone thinks personal finance is a topic to sing about, but Julie Beckham has made a career out of it. Since April is Financial Literacy Month, we thought we'd invite her on to the show. Now the AVP/Financial Education Development & Strategy Officer at Rockland Trust Bank, Julie was tasked by the previous owner, Blue Hills Bank, with expanding its commitment to the community by finding a way to educate children about money. Always up for a challenge, Julie tapped into her wealth of experience as an actress and singer to create her persona “Ms. Money” and her musical, “Ms. Money & the Coins.” For the last 13 years, she's been sharing this entertaining curriculum with children in the United States and around the world www.rocklandtrust.com. What started out as an idea to teach children about money turned into a multilingual video-based program, complete with interactive learning modules. Says Julie: “If I can make something fun for children and easy for teachers, that's a win-win.” Born and raised in Canton, Massachusetts, Julie's love for the theatre was born when she landed the role of Dorothy in her elementary school's production of The Wizard of Oz. A graduate of New York University's Tisch School of the Arts, Julie was a working actor for years before returning home to be a hands-on aunt to her newborn niece, Lucy, who was born with Downs Syndrome. Says Julie: “The world stopped, and we needed each other. You discover what the epicenter of YOU is and for me, that's family.” The mother of two children, Julie shares her belief that “it is crucial for parents to share their mistakes. How we handle mistakes is important for our children to see, including mistakes about money.” And just in case you're feeling left out, Julie has a podcast series for adults, too, called “No Shame in this Money Game.” For 23 minutes of financial fun, just hit that download button. #financialliteracy #education #money #banking
This episode of Raising Joy saddles up for an inspiring conversation about mental health with Hallie Sheade, Ph.D., LPC-S, RPT-S, Executive Director of S.T.E.P.S. With Horses. Dr. Sheade, a licensed professional counselor who incorporates horses into her therapy sessions, will reveal the surprising power of these majestic creatures to help people and kids open up, learn, and heal in ways traditional talk therapy sometimes can't. Join us as we explore the unique benefits of equine-assisted services and discover how horses can become powerful partners on the path to mental well-being.Learn more here: https://www.stepswithhorses.org/
This episode of Raising Joy tackles a tough but crucial topic: child sex trafficking. Our guest, Stacey Henley, a child abuse expert from Cook Children's C.A.R.E. team, offers a powerful perspective. Stacey sheds light on the realities of child victimization, but also empowers parents with knowledge. Join us for this important conversation and learn how we can all work together to create a safer environment for our children.
Nicole became a mother at 18 to a beautiful baby boy who also happened to have Downs Syndrome. She eventually met her future husband, and father to another amazing boy with Downs Syndrome, and they were living life to the fullest. And then, Nicole's husband died. Listen to her story in this interview with Anita and Mel.Help us keep the Widow We Do Now podcast going!http://www.patreon.com/wwdnWant to buy us some tacos?https://www.buymeacoffee.com/widowwedonowSponsored by:Rock House Financial & the podcast: He's Gone But The Money's Nothttps://rockhousefinancial.com/podcasts/BetterHelp.com. Save 10% off the first month of online therapy done securely, online with our unique link: https://trybetterhelp.com/wwdnMint Mobile: Mobile phone plans with great service and coverage starting at $15/month https://trymintmobile.com/wwdn
What kind of impact can a single pair of shoes have on a child's life? According to Sam Sayed, a medical student at the TCU Burnett School of Medicine, the impact can be life-altering. At least this was the case for his own life. On this special episode of Raising Joy, Sam talks to us about his nonprofit, Dayna's Footprints, which he started with his brother Sharif Sayed. Their mission is, “To combat learning inequity by providing students shoes to wear proudly, subsequently increasing students' self-esteem and enthusiasm for attending school.”Sam tells shares his story of growing up underprivileged in Arlington, Texas, and how a pair of shoes gifted by his sister Dayna changed the trajectory of the brothers' lives. Watch their TedX talk: https://www.ted.com/talks/sam_sharif_sayed_a_day_in_their_shoes/transcript ABC News Story:https://abcnews.go.com/US/texas-medical-student-back-community-free-shoes-nonprofit/story?id=105805418
Those with Down Syndrome are more likely to have Celiac Disease.A study in the Journal of Pediatric Gastroenterology and Nutrition 71(2):p 252-256, August 2020. | DOI: 10.1097/MPG.0000000000002742 identified a high (9.8%) prevalence of celiac disease in children with Down syndrome when routine screening practices were implemented in the Down syndrome clinic starting in 2011. Overall, 82% of these children with celiac disease were diagnosed by screening in the referral clinic. Without the practice of routine screening in the specialty clinic, the vast majority of cases would not have been detected in routine visits from primary care. In honor of World Down Syndrome Day on March 21st, please share this article with anyone you know who loves or cares for someone with Downs. Hosted on Acast. See acast.com/privacy for more information.
World Down Syndrome Day is March 21, 2024. Join us for an uplifting conversation with Alexis Pechek and Ileana Hamilton, two parents whose lives have been enriched by their children with Down syndrome. They'll share their honest journeys - from navigating the initial diagnosis to the beautiful ways their families have grown. This episode is a beacon of hope for any parent facing a new Down syndrome diagnosis, reminding us of the profound joy these incredible children bring to the world.
In this episode, Janna interviews Christy Ingram, wife of Pastor Billy Ingram, about the difficulties she experienced having children and what God taught her through those challenges. Listen and learn how to change your perspective on your trials so that you can be "set up" to gain the most from them.Faith Talks is a monthly program on the Thee Generation podcast designed to help young ladies discover greater ways to nurture and exercise their faith in their day-to-day walk with Christ. To leave a question for the Faith Twins or our guest, send an email to faithtalks@theegeneration.org. If you've been encouraged by this podcast, please take the time to give us a five-star rating and write a brief review. That would help tremendously in getting the word out and raising the visibility of the Thee Generation for others. For more faith inspiring resources and information about joining Thee Generation, please visit theegeneration.org.
Holmberg's Morning Sickness - Friday February 2, 2024 Learn more about your ad choices. Visit megaphone.fm/adchoices
Holmberg's Morning Sickness - Brady Report - Wednesday January 10, 2024 Learn more about your ad choices. Visit megaphone.fm/adchoices