Podcasts about patient advocate

Patient advocacy shows up in so many meaningful ways, and my guest on this episode of the DiepCJourney® podcast has been part of my own journey since the very beginning. We first connected back in 2015, when I was just starting to write my blog. She offered guidance, encouragement, and wisdom at a time when I was still finding my footing. I've followed her story ever since, and her voice has continued to inspire me and so many others. As a valued member of the DiepCJourney® community, it felt only natural to invite her to share her experience with all of you. I'm delighted to welcome Rebecca Hogue, Becky to her friends. She shares her many life transitions from professional work, moving from the U.S. and back to Canada, two breast cancer diagnoses, and the value of being your own best advocate in your healthcare. Navigating two healthcare systems and transferring records was not always an easy task for Becky. She shares what challenges she faced and what she did to optimize her own healthcare in two different countries. She is a published author and is diving into the world of podcasting. I highly recommend you reach out to Becky on the following websites. She is always willing to help when she is not clearing snow and driving a snowplow for her city in Nova Scotia. Websites to find Becky: https://rebeccahogue.com/ https://bcbecky.com/ Find her book on Amazon by Rebecca J. Hogue: Never Knew I Wanted to be a Breast Cancer Survivor Check out more about her new podcast: https://definitelynotfamous.com/ Connect with Becky on the following platforms: LinkedIn: https://www.linkedin.com/in/rjhogue/ Facebook: https://www.facebook.com/rhogue Instagram: https://www.instagram.com/hogue.rebecca/

Today marks World Cancer Day, which is observed globally on the 4th of February. The Cancer Association of South Africa (CANSA) says the country's cancer burden is growing fast with new cases projected to double by 2030, reaching around 220,000 annually. The Association says people‑centred care can save lives, restore dignity and give hope. Elvis Presslin spoke to CANSA Clinical Health Specialist and Patient Advocate, Professor Michael Herbst

In this episode, Jay Blaze sits down with @oppies_law1130 for a raw and honest conversation about cannabis, advocacy, and survival.From being prescribed 22 pills a day for mental health, to using cannabis as a tool for balance, purpose, and healing—this journey didn't stop at advocacy. It expanded into public education, nonprofit work, and now navigating small cell lung cancer treatment with cannabis as part of the process.Oppie shares how a lifetime relationship with the plant evolved into intentional, medicinal use in 2012—leading to research involvement with the Bowen Center in Indiana, patient advocacy work across 44 states, and a commitment to changing how people understand cannabis and healthcare.This isn't a debate.This isn't a how-to.It's a lived experience.We talk mental health, policy, stigma, cancer treatment, and what it really means to advocate when the stakes are personal.If you're here for real stories, real learning, and conversations that don't fit into soundbites—this episode is for you.

Host Mark Hochgesang huddles with the inspiring and relentlessly optimistic Danny van Leeuwen—athlete, nurse, storyteller, and champion for living fully with a chronic illness. Danny doesn't just talk about resilience; he lives it daily with multiple sclerosis while still pursuing movement, connection, and joy. His perspective flips the script from “What's wrong?” to “What's possible?” as we explore how folks can redefine success, choose hope, and keep moving forward even when the road gets rocky. If you're ready for a conversation filled with energy, laughter, practical wisdom, and a contagious belief in what the human spirit can do—this episode is for you. Enjoy sports fans!Danny's Health Hats Website: https://health-hats.com/Danny's Health Hats Podcast: https://health-hats.com/new-health-hats-blog/EPISODE TIME STAMPS0:00 –  Opening and Episode Setup01:18 –  Meet Danny van Leeuwen02:07 – Athlete Roots and Early Lessons04:56 – Danny's Competitive Spirit06:10 -  The MS Diagnosis 12:00 – Movement Matters15:42 – Attitude is Everything17:40 – Teamwork Makes the Dream Work20:37 – Beautiful Music22:50 – Oh the Places You'll Go24:09 – Winning Redefined25:00 – Pathological Optimist26:10 – What Do You Do When You Can't?28:56 – Final Takeaways and ClosingListeners, please subscribe to Heavy Hitter Sports wherever you listen to podcasts so that you don't miss any future episodes. Ideally, please also rate & review the show. And share this episode with a coworker, friend or family member who it might benefit. Feel free to reach out if you have suggestions re future episode guests or topics. Mark's contact info is noted below. Many thanks. mphochgesang@gmail.com971-985-6909

Jennifer was raised to be strong and independent—and she carried that identity proudly. As a critical care nurse, she believed she knew the answers to what it meant to be healthy and well. But life had other lessons waiting. Her journey shifted in 2002, when her second son suffered a massive neonatal stroke just one hour after birth. The experience awakened her to the many gaps in the healthcare system and inspired her to begin bridging those gaps through energy work, nutrition, and exercise. Several years later, on the same day she discovered she was expecting her fourth child, Jennifer learned that her third son—then just two-and-a-half years old—had been diagnosed with high-risk leukemia. Between caring for her children, managing her family, and supporting a husband working long surgical hours, Jennifer's own health began to unravel. She experienced panic attacks, migraines, digestive issues, and chronic tension. She describes years of giving endlessly—until there was nothing left to give. In 2010, a medical episode that presented as a stroke but was later diagnosed as an atypical migraine became her wake-up call. Jennifer recognized the lifelong pattern she was living out: the giver who never learned to receive. It was the turning point that pushed her to let go of perfection, learn to ask for help, and honour her limits. She began to say yes to herself, to rest, to reset, and to redefine what strength truly means. Her story is one of radical self-awareness—of learning that being enough does not mean doing it all, and that real power often lies in the pause. Her key message to the listeners of the show is: You are so much stronger than you think you are, and then you rise; give yourself permission to pause, there is so much power in that pause; it's okay to not to be okay, you are not broken, it is information that you are out of balance, so show up for yourself now.     Guest Bio: Jennifer Wren Tolo, known as "The Soul Connector," is a former critical care nurse turned award-winning health and wellness educator, transformational life coach, and sought-after speaker. She empowers women to move beyond survival mode and reclaim their happiness, health, and power. Inspired by navigating life-threatening illnesses with two of her four sons, Jennifer created her signature method, the "ABC's of Stress Management," helping clients reconnect with their inner voice and the wisdom of their soul. A bestselling author and Adjunct Professor at Endicott College's School of Nursing, Jennifer teaches Holistic and Complementary Approaches to Health and Healing. She holds both BSN and Master's degrees and is certified as a Whole Health Educator and Patient Advocate, Personal Trainer, Reiki Master, and in Mindfulness-Based Stress Reduction. Jennifer is also the host of the Simple Awakenings Podcast, an executive contributor to BRAINZ magazine, and has been featured in Women's Journal, US Business Insider, and on FOX and ABC News.   URL for shoutout: https://wish.org/ Make-A-Wish Foundation – an organization devoted to bringing hope, joy, and life-changing experiences to children facing critical illnesses, offering moments of light and possibility when families need it most.   Where to find me: Website: https://jenniferwrentolo.com Instagram: Instagram@Jenwrentolo LinkedIn: hLinkedin @Jennifer-tolo-RN-MA Facebook: Facebook @jenwrentolo Pillar.io/ Links: https://pillar.io/jenwrentolo   

Welcome to Nephluence Project, a podcast where patients, caregivers, clinicians, researchers, and healthcare leaders come together to explore kidney disease from every perspective. I'm Marc Coronel, TEDx Speaker, Author, Healthcare Consultant, and Patient Advocate advancing patient-centered storytelling in healthcare and policy.This podcast is designed to give you real, honest conversations about kidney disease, dialysis, transplant journeys, patient advocacy, and how communication and influence can improve outcomes for everyone affected. Each episode dives into lived experiences, actionable insights, and systemic solutions, helping patients and professionals navigate this complex landscape with clarity and confidence.Whether you are living with kidney disease, caring for a loved one, or working in healthcare, Nephluence Project provides a platform where your voice matters and where shared understanding can drive real change. You will hear stories from patients, insights from clinicians, perspectives from caregivers, and innovation updates from researchers and policy leaders.This trailer gives you a taste of what's to come: inspiring stories, practical guidance, and conversations designed to empower, educate, and connect the kidney community like never before. We focus on bridging the gap between lived experience and healthcare expertise, creating a space where everyone affected by kidney disease can be heard and understood.Before we begin, a quick note: Nephluence Project is a podcast for education, conversation, and shared perspective. The content reflects personal experiences and professional insights and is not intended to replace medical advice. Always consult your healthcare team regarding your individual care.Subscribe now to join the conversation and be part of a community dedicated to advancing patient-centered care, improving outcomes, and amplifying voices across the kidney ecosystem. This is Nephluence Project, where science knows the data, and patients know the impact.

The Minister for Health is being encouraged to establish timelines and costings for measures intended to ease the overcrowding crisis at the region's main hospital once the Dáil resumes. Minister Jennifer Carroll MacNeill announced in December that the Government has accepted all three of HIQA's recommendations regarding alleviating hospital overcrowding in the Midwest. These are the expansion of capacity at University Hospital Limerick, the extension of the UHL campus to a second nearby site and the development of a new hospital with an emerency department in the region. Lahinch-based Patient Advocate on HSE Midwest's Programme Improvement Board John Wall says people need specifics as soon as possible.

Dr John Malios is an experienced general practitioner and medico-legal examiner, retiring after a 50-year career in general practice. He founded the Oakleigh and District Health Centre (now The General Practitioner) in 1972 and went on to serve as Convenor of Medical Panels Victoria (2012–2017) and Deputy Convenor (2007–2012). He continues to contribute as a Presiding Member on Medical Panel Tribunals and has extensive expertise in medico-legal impairment assessment under the AMA Guides for WorkSafe and Wrongs Act claims. Dr Malios also delivers training for the Personal Injury Education Foundation (PIEF). Currently, he is an occupational health consultant in private industry, Medical Advisor and committee member of Thalassaemia and Sickle Cell Australia, a member of the consumer advocacy group for Primary Aldosteronism, and an Associate Investigator with the Hudson Institute's Primary Aldosteronism Centre of Excellence (PACE). Dr Malios is a Life Member of the AMA and RACGP, and a member of the Australian College of Legal Medicine.

Have you ever found yourself helping a loved one through a confusing medical situation and thought, "I wish I could do this full-time"? You're not alone. Many physicians are naturally drawn to patient advocacy and navigation, even if they don't yet realize it has a name or a career path. In this episode, I'm joined by Dr. Angie Ingraham, a former trauma surgeon and critical care physician who made a powerful career transition after her father's diagnosis with glioblastoma. Experiencing the healthcare system from the other side opened her eyes to the gaps patients and families face. That journey led her to launch True North Patient Advocates, where she now supports others through complex medical situations with clarity and compassion. Whether you've thought about becoming a patient advocate and navigator — or are simply curious about what this work actually involves — Angie shares the real-life steps she took to create a fulfilling and sustainable new path.   In this episode we're talking about: How a personal family crisis led Dr. Ingraham to explore patient navigation The surprising barriers patients face, even with medical connections What professional patient advocates and navigators actually do and how physicians are uniquely qualified How she built her business without formal business training The variety of clients and services in her day-to-day work Financial considerations and typical rates for advocates Steps you can take to explore this path for yourself You can find the show notes for this episode and more information by clicking here: www.doctorscrossing.com/episode236 Links for this episode: Dr. Angie Ingram — True North Patient Advocates Greater National Advocates Directory Alliance of Professional Health Advocates - Offers a Boot Camp and 100-day program for business startup Health Advocate X Patient Advocate Certification Board National Association of Healthcare Advocacy Work Episode #68: Being a Patient Advocate is a Real Option Episode #156: How To Start A Side Gig Or Business As A Patient Navigator  

This episode is part of the special series Empowered Intimacy: Getting Your Sexy Back After Breast Cancer, where getting your sexy back is about reclaiming confidence, connection, and desire after a breast cancer diagnosis. Melissa Berry sits down with Chelsey Pickthorn, a patient advocate living with stage four triple-negative breast cancer, and Dr. Don Dizon, Chief of Hematology and Oncology at Tufts Medicine and a national leader in sexual health and inclusive cancer care.  They explore the challenges LGBTQ+ individuals face with intimacy, dating, body image, and relationships after a cancer diagnosis. Chelsey shares her experiences navigating disclosure, reconstruction, caregiving, and connection, while Dr. Dizon highlights gaps in healthcare for LGBTQ+ patients.  This honest and hopeful conversation offers guidance, empowerment, and advocacy for inclusive care. Thank you to Lilly, Merck, and Novartis for making this episode possible.  

On this episode Fred Goldstein invites Marty Acevedo, MS, RD, Patient Advocate and President & Board Chair of the Parkinson's Association of San Diego. Marty shares her personal journey with Parkinson's disease—from a delayed diagnosis to managing symptoms, treatment decisions, and the impact on daily life. She discusses the importance of individualized care, the essential role of caregivers, and the value of evidence-based resources. Marty also highlights her involvement in the Michael J. Fox Foundation's Parkinson's Progression Markers Initiative (PPMI) research study and offers perspective on emerging advances and potential disease-modifying therapies that may shape the future of Parkinson's care. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen/

John Wall, Chair of the HSE Mid West Patient and Service User Council, joins Joe to talk about the best way forward for Mid West healthcare. Hosted on Acast. See acast.com/privacy for more information.

TJ Sharpe is a stage four melanoma survivor, nationally known patient advocate, keynote speaker, digital health technologist, and consultant to the life sciences industry. Drawing from personal experience and his work in clinical research, TJ empowers healthcare and pharma organizations to prioritize patient-centric approaches to trials, communication, and support. He shares his story to inspire others facing adversity and to promote transformative improvements in healthcare. In this episode of Marketer of the Day, TJ Sharpe joins Robert Plank to recount his journey from being diagnosed with melanoma in his twenties, through a life-threatening recurrence that led him to cutting-edge clinical trials, to his eventual recovery and the launch of his advocacy career. TJ details his navigation of the medical system, the emotional and logistical challenges faced by patients, and how gratitude and support systems are as important as medical interventions. The discussion spotlights the importance of accessible, transparent information, and patient empowerment within clinical research. TJ also describes his consulting work to help organizations incorporate patient voices and streamline drug development for the benefit of all. Quotes: “If you don't know all your options, you're not making the most informed choice for you.” “Finding your ‘ninja'—that support person—makes all the difference in getting through a cancer journey.” “It's not just about surviving cancer, it's about making a difference for millions more who will walk this path.” Resources: Visit TJ Sharpe's Website Connect with TJ Sharpe on LinkedIn

Scott Capozza, PT, MSPT, is a board-certified physical therapist who specializes in oncology at Yale Cancer Center.More than 20 years ago, he was diagnosed with testicular cancer while in graduate school at age 22. As he explained in an article about his cancer journey, “Suddenly I had to schedule an orchiectomy, a retroperitoneal lymph node dissection, and two cycles of chemotherapy around lectures, laboratory work, and practical exams.”Scott shares his experiences with testicular cancer then and now, along with what he's doing to support cancer patients and survivors through physical therapy.  Patient advocacy: Recently, as a patient advocate and testicular cancer survivor, Scott has spoken at conferences to share his lived experiences. He explains this role in the podcast."It almost is our responsibility or our obligation to get in front of these medical providers to say, you have to listen to your patients. You have to make these shared decisions with your patient. You can't blindly take the shotgun approach, give the treatment, and be done with it. You have to factor in quality of life. You have to factor in who that person is..."Hear more from Scott Capozza about his work as an oncology-focused physical therapist, father, patient advocate, and testicular cancer survivor in this episode of Don't Give Up on Testicular Cancer from the Max Mallory Foundation.  Send us a textSupport the showFind us on Twitter, Instagram, Facebook & Linkedin. If you can please support our nonprofit through Patreon.

How to Speak Up in the Hospital (Without Being Dismissed) w/Julie SiemersPatient Safety Expert, Visionary Nurse Leader, Transformative EducatorDr. Julie Siemers, DNP, MSN, RN, is a patient safety consultant, industry nurse leader, educator, and TEDx speaker. She is also the founder of Lifebeat Solutions and the author of the bestselling book ‘Surviving Your Hospital Stay: A Nurse Educator's Guide to Staying Safe and Living to Tell About It.'Dr. Siemers holds a Doctor of Nursing Practice degree from Touro University, Nevada. She brings more than four decades of experience and expertise in nursing practice, education, and executive leadership to the healthcare arena.She spent 15 years in nursing education, serving in roles ranging from Professor to Dean, and as Executive Director at a large nursing university in California. She has a rich background in direct patient care, with experience in various roles on the medical/surgical care floor, in the Intensive Care Unit, the emergency department, and the trauma resuscitation department at University Medical Center in Las Vegas. Additionally, she served as a flight nurse on a trauma helicopter for 10 years.Since 2009, Dr. Siemers has been educating students, colleagues, and the broader medical community on the vital skills needed to recognize patient deterioration and ensure safe nursing practices. Now, as a patient safety expert and the founder of Lifebeat Solutions, she is on a mission to make healthcare safer for everyone.Links:https://drjuliesiemers.com/patient-safety-checklisthttps://www.instagram.com/drjuliesiemers/Tags:Health Care,Healthcare Advocate,Nurse,Patient Advocate,Live Video Podcast Interview,Phantom Electric Ghost Podcast,Podcast,How to Speak Up in the Hospital (Without Being Dismissed) w/Julie SiemersSupport PEG by checking out our Sponsors:Download and use Newsly for free now from www.newsly.me or from the link in the description, and use promo code “GHOST” and receive a 1-month free premium subscription.The best tool for getting podcast guests:https://podmatch.com/signup/phantomelectricghostSubscribe to our Instagram for exclusive content:https://www.instagram.com/expansive_sound_experiments/Subscribe to our YouTube https://youtube.com/@phantomelectricghost?si=rEyT56WQvDsAoRprRSShttps://anchor.fm/s/3b31908/podcast/rssSubstackhttps://substack.com/@phantomelectricghost?utm_source=edit-profile-page

Terry Tucker is a speaker, author, and podcast guest on the topics of mindset, motivation, and self-development. He is the Founder of Motivational Check LLC. Terry has a Bachelor of Science degree in Business Administration from The Citadel and a Master's degree from Boston University. Among his many diverse roles, he has been a college basketball player, a marketing executive, a hospital administrator, a SWAT Hostage Negotiator, a business owner, and for the past 13 years, a cancer warrior. He is the author of the book Sustainable Excellence, Ten Principles To Leading Your Uncommon and Extraordinary Life, and a featured author in the book Perspectives On Cancer, Stories of Healing, Hope, And Resilience. Terry has also been published in Authority, Thrive Global, and Human Capital Leadership magazines, along with being quoted and highlighted in the books Your Blueprint for Purpose by John Creekmur and Audaciousness, Your Journey To Living A Bold And Authentic Life by Maribel Ortega and Helen Strong.

In this episode of 'Confessions of a Terrible Leader', Layci Nelson speaks with Dana Sherwin about her framework, the Thinking Patient, which empowers individuals to take charge of their healthcare. Dana shares her personal health journey, emphasizing the importance of patient engagement, preparation, and effective communication with healthcare providers. The conversation highlights the need for patients to be proactive, ask questions, and participate actively in their health decisions, ultimately leading to better health outcomes. Dana also reflects on her leadership experiences and the lessons learned from her health challenges.Takeaways:Being engaged in your care leads to better health outcomes.Preparation is crucial for effective communication with healthcare providers.Patients should be the CEO of their own health.Understanding medical language enhances patient advocacy.Asking questions is essential for informed health decisions.Courage in healthcare can be built gradually.Active participation in appointments improves patient experiences.Trustworthy health information comes from reputable sources.Communication skills are vital for healthcare leaders.Learning from personal health experiences can inform better patient care.Chapters00:00 Introduction to the Thinking Patient Framework02:55 Dana's Personal Health Journey06:00 The Importance of Patient Engagement08:57 Preparing for Medical Appointments11:38 Understanding Medical Language15:00 The Art of Questioning17:40 Active Participation in Healthcare20:42 Building Courage in Health Advocacy23:39 Dana's Leadership Confession26:38 Conclusion and ResourcesEPISODE LINKS:https://www.thethinkingpatient.com/abouthttps://www.linkedin.com/in/desherwin/

Stephen Garner is a patient researching their own disease, exploring the frontiers of human knowledge, and developing new frameworks as an ethical theorist. After reducing the severity and frequency of his own autoimmune symptoms through targeted nutrition, biochemical modeling, and self-experimentation, Stephen now shares his experience, and findings, to help others better understand and manage chronic illness. With a background in emergency services, information technology, and scientific theory-building, he brings a systems-oriented lens to the intersection of health, ethics, and personal agency. His current work focuses on giving the body the tools it needs to maintain systems coherence; combining insights from microbiome science, immune regulation, and cognitive framing.

"I wanted the TV version of cancer". This week, guest Christine Fader talks openly about the realities of illness and loss, what real support looks like, and reveal the complexities of navigating life after the death of a spouse. From the challenges of anticipatory grief and survivor's guilt to harnessing rage for positive impact, Christine offers insight, hope, and actionable advice for anyone on this hard journey.7 Key Takeaways from today are:The Reality of Long Illness & Loss: Christine's experience caring for Michael shatters expectations set by popular media, highlighting the unpredictable, deeply painful, and sometimes traumatic reality of terminal illness and caregiving.Navigating Guilt and Regret: Christine candidly discusses feelings of guilt and regret about the choices made in Michael's final months, and shares how she learned to make peace with decisions that were out of her control.The Importance of Honest Conversations: Avoiding conversations about death to protect a partner's hope often leads to missed opportunities for deeper connection. Christine encourages listeners to have open, meaningful discussions—even if they feel uncomfortable.Unexpected Impact of Grief: Even with preparation and anticipatory grief, the shock and physical consequences of losing a spouse—difficulty reading, headaches, disrupted sleep and eating patterns—can be overwhelming. Recognizing these as normal can help with processing the experience.Seeking Support and Connection: Christine highlights the value of widow support groups, online communities, and social media as lifelines, especially for those who might otherwise isolate. Finding others who “get it” is essential.Harnessing Rage for Good: Fueled by anger over Michael's suffering and trauma, Christine turned her rage into action by volunteering and advocating for trauma-informed cancer care and awareness—showing how channeling negative emotions can lead to positive change.Finding Purpose Through Advocacy and Legacy: Christine's work—creating a scholarship in Michael's name and sharing their story with cancer care professionals—reflects the power of transforming personal tragedy into support and hope for others.Listen in for inspiration, practical advice, and heartfelt wisdom—whether you're grieving, caring, or seeking ways to make a difference. Christine's courage and honesty will touch your heart and help you feel less alone.Visit ChristineFader.com and follow her on Instagram at @awidowswalk to learn more about her advocacy and writing. For community support, join the Widow180 Facebook group. Be sure to join our Facebook group, Widow 180 The Community: https://www.facebook.com/groups/312036956454927Also follow us on Insta: https://www.instagram.com/widow_180/Check us out on YouTube at Widow 180: The Channel: https://www.youtube.com/channel/UC-DK_dl31qMilJ5cE6t9MVQFor more blog posts and resources go to www.widow180.comQuestions? Email me at jen@widow180.com

Guest: Andrea StoneWebsite: Home - True Path Wellness CollectiveInstagram: Andrea Stone on InstagramJoin us for a powerful conversation with Andrea Stone, founder of True Path Wellness Collective, certified personal trainer, health coach, and pilates instructor. In this episode, Andrea shares her remarkable story of resilience—navigating six major surgeries, her own autoimmune conditions, and years of caregiving for a child with chronic illness.Andrea is the ultimate Patient Advocate, and she breaks down the critical importance of self-advocacy when you feel stuck or overlooked by the healthcare system. We dive deep into the healing power of breath, compassion, and techniques for regulating your nervous system. Andrea offers actionable insight on moving from struggle to strength, cultivating gratitude for an able body, and how to redefine your health story no matter where you are starting from. This episode is a must-listen for anyone seeking to be a more empowered, fierce advocate for their own well-being.Mentioned in the episode:Caraway- https://rstr.co/caraway/22693 Code- GOLDIVY for a 10% discount at checkoutSmidge- Magnesium Supplements for a Good Night's Sleep | Smidge® Code- GOLDIVY10 for a 10% discount at checkoutSafeSleeve- safesleevecases.com/collections Code- GOLDIVY for a 15% discount at checkoutAll Things Elderberry- www.allthingselderberry.com Code- GOLDIVY at checkout for 15% off your first order*Additionally, we want to remind you that this podcast is presented solely for educational and entertainment purposes. We are not licensed therapists, and this podcast is not intended as a substitute for the advice of a physician, professional coach, psychotherapist, or other qualified professional.*Find Andrea & Brooke as @goldivyhealthco on Instagram: Brooke Herbert | Andrea Herbert (@goldivyhealthco) • Instagram photos and videos#healingjourney #selfadvocate #healthadvocate #pilates #nervoussystemregulation #strongwomenSupport the show

Kimberly Warner is a filmmaker, author, and patient advocate whose work explores what it means to live fully in a body that doesn't always feel well. After studying pre-med and biology at Colorado College and pursuing graduate training in naturopathic and classical Chinese medicine, she veered from a clinical path toward a creative one, trading diagnostics for documentary and turning questions of health into stories of meaning. After developing a rare neurological disorder in 2015, Kimberly turned her artistic focus inward, embracing stillness, intimacy, and relationship as the foundation of her work. In 2019, she launched Unfixed, a media project that now includes award-winning films, limited series, podcasts, memoirs, and live roundtables. Her work has been recognized by PBS, Harvard Medical School, and the Invisible Disabilities Association, among others. Kimberly leads a larger advocacy role within the chronic illness community where she writes and speaks about her own patient experience. She is a member of the Global Advocacy Alliance, the PPAA (Patient and Physician Advocacy Alliance,) is a visiting faculty member with Global Genes, helped create a Course for Clinical Confidence—a medical school certificate course, is on the editorial board of the Journal of Health Design and is an ambassador for VeDA. She is also Life on the Level's Best International Contribution Award, Rainbow Advocacy's Most Innovative Storytelling Award, and the recipient of the Invisible Disabilities Association's Media Impact Award. Her forthcoming memoir, Unfixed: A Memoir of Family, Mystery, and the Currents That Carry You Home, will be published by Empress Editions in October 2025. She lives in rural Oregon with her husband, David, where they tend their small farm between creative projects. When she's not editing films, harvesting calendula, or writing for her beloved Substack audience, she's practicing what she preaches: loosening her grip, staying curious, and letting uncertainty become a place of peace. Links: Preorder memoir: https://a.co/d/185zEos Main website: https://unfixedmedia.com/ Substack (for essays and interviews): https://unfixed.substack.com/ Tax deductible donations: https://www.flipcause.com/secure/cause_pdetails/MTIyMDgx 2025-26 projects * Unbound (short film): https://unfixedmedia.com/unbound * Unsung (short film): https://unfixedmedia.com/unfixed-unsung * Liberation of Being (patient memoir): https://unfixedmedia.com/liberationofbeing * Unfixed: What Time Makes of Us (feature film, focusing on 6 members of the original cast of the Unfixed docuseries)

Did you know that a tick bite could lead to a food allergy?  Join Food Sleuth Radio host and Registered Dietitian, Melinda Hemmelgarn for her conversation with Sharon Forsyth, conservationist and patient advocate for the alpha-gal syndrome community. Forsyth created Alpha-gal Information.org, a comprehensive informational resource on AGS. She discusses how to avoid tick bites and the challenges of living with alpha-gal food allergy (also known as mammalian meat allergy).Related Websites: https://alphagalaction.org/

What happens when a music executive's precision meets a life-changing diagnosis? In this candid episode of All Talk Oncology, Kenny Perkins sits down with Mathew Knowles—music executive, author of The DNA of Achievers, and male breast cancer survivor. A tiny sign on a white T-shirt (nipple discharge) led Mathew to insist on a mammogram, a Stage 1A diagnosis, surgery, and the discovery of a BRCA2 variant. Drawing on his 20-year background in medical imaging, he breaks down early detection, building a winning care team, and why he now lives by quarterly labs, therapy, movement, and joy. From COVID-era anxiety to laughter-filled nights with his wife, Mathew shares the mindset shifts and habits that helped him rebuild a life he loves—one mindful walk and measured plate at a time. Key Topics Discussed Men get breast cancer: the overlooked red flags (nipple discharge) and why Mathew demanded a mammogram BRCA2 explained: risk implications for men (melanoma, pancreatic, prostate, male breast cancer) and for women (breast, gynecologic) Diagnosed at Stage 1A: survival odds, surgery, and five years on Tamoxifen From isolation to a care team: oncologist, therapist, spiritual support—and why isolation increases risk COVID anxiety & mental health: therapy to confront fear of dying and regain balance Diet, weight loss (~40 lbs), and daily 2-mile brisk walks—“cancer loves obesity” Portion control and practical nutrition: measuring plates, lighter foods, consistent habits Quarterly labs for peace of mind (not just annual checkups); self-advocacy with your clinicians “Look out the window”: stillness, nature, laughter, and marriage strengthened through survivorship Family history & genetics: why genetic testing + knowing your lineage should start early Men's health advocacy: PSA tests, breaking cultural conditioning, and getting over outdated fears   Immortalize your voice by being an ALL TALK ONCOLOGY GUEST! Just fill-out this FORM.   SOCIAL MEDIA LINKS: All Talk Oncology: Instagram & Facebook JOIN OUR FREE COMMUNITY: Facebook Community WEBSITE: https://www.alltalkoncology.com

Jason Wolf sits down with Tyler Gegen to discuss his intentional path into patient experience leadership. Tyler shares how curiosity, relationships, and a focus on humanity continue to shape his work and the future of healthcare.

Discover expert insights on kidney stone prevention and management in this podcast episode featuring a physician, dietitian, pharmacist, and patient. Learn about key kidney stone risk factors and explore how dietary adjustments can reduce stone recurrence. Experts discuss fluid intake strategies, medication considerations, surgical indications, and even unconventional questions about roller coasters' impact on stone passage. Tune in for actionable advice, myth-busting discussions, and interprofessional perspectives.   On today's episode we heard from: Melanie Betz, MS, RD, CSR, FNKF, FAND is a nationally recognized renal dietitian and the Founder & CEO of The Kidney Dietitian. She is a Certified Specialist in Renal Nutrition and a Fellow of both the National Kidney Foundation and the Academy of Nutrition & Dietetics. Melanie has published extensively on kidney stone prevention and nutrition, and has presented at numerous state, national, and international conferences on the topic. Through her clinical work, research, and educational outreach, she is dedicated to helping patients and professionals understand the critical role of diet in kidney health. Mark Garofoli, PharmD, MBA, BCGP, CPE, CTTS is a Clinical Associate Professor at West Virginia University School of Pharmacy and a Clinical Pain & Addiction Pharmacist. With expertise in pain management, substance use disorders, and geriatric care, he brings both clinical and personal perspectives to kidney stone discussions. Mark has shared his experience through the Pain Pod podcast, PAINWeek presentations, and a published article detailing his own kidney stone journey. Mary Raines, CRA is a retired clinical research associate with more than 30 years of experience in medical research. After learning she needed a kidney transplant, she dedicated herself to advocacy and now serves as a Patient Advocate with the National Kidney Foundation and other kidney health organizations. Mary brings both professional expertise and personal experience to her work, amplifying the voices and needs of people living with kidney disease. Andrew Rule, MD, MSc is a Professor of Medicine and Consultant Nephrologist at the Mayo Clinic in Rochester, Minnesota. He divides his time between clinical care, research, and education, with a particular focus on kidney stone disease and its link to chronic kidney disease. Dr. Rule has published extensively on the epidemiology of kidney stones and provides specialized care in the Mayo Clinic's nephrology stone clinic. Bryan Tucker, DO, MS, FASN is an Assistant Professor of Medicine in Nephrology at Baylor College of Medicine, where he serves as a clinician educator teaching medical students, residents, and fellows while caring for patients in both inpatient and outpatient settings. He holds a master's degree in nutrition from Columbia University and completed his nephrology fellowship at Yale. A Fellow of the American Society of Nephrology, Dr. Tucker has authored numerous peer-reviewed publications and book chapters and is an active contributor to The Kidney Commute podcast.   Additional Resources: Kidney Stone Information Earn CME Credit Here Do you have comments, questions, or suggestions? Email us at NKFpodcast@kidney.org. Also, make sure to rate and review us wherever you listen to podcasts.  

The Prime Minister has said he is "delivering" on National's election promise not to forget blood cancer patients despite some telling Checkpoint they feel forgotten. Checkpoint has spoken to a number of blood cancer patients who've had to set up donation pages or raid their Kiwisaver to get the potentially life prolonging unfunded Daratumumab or, dara, which costs hundreds of thousands of dollars or even move to Australia to get the drug. Malcolm Mulholland from Patient Voice Aotearoa.

Maria Montoya shares her personal experience as a two-time breast cancer survivor. Diagnosed first at 30 and later at 37, she discusses dealing with Li Fraumeni Syndrome—a rare genetic predisposition to various cancers. Maria also talks about the systemic gaps she encountered in the healthcare system, such as limited genetic testing and inadequate fertility counseling, and what can be done to fix this. She also shares how getting treatment during the isolating early months of the COVID-19 pandemic fueled her passion for cancer care advocacy and systemic change. Now pursuing a Master's in Social Work, Maria aims to address systemic healthcare challenges, focusing on improving psychosocial support and survivorship care.Maria's bio and LinkedIn profileTell us your thoughts on this episode!Support the showBecome a member of The Cancer Pod Community! Gain access to live Q&As, exclusive content, and so much more! Join us today! Check out our website! Looking for more information? We have blogs, merch, and all of our episodes listed by season and category. Shop our favorite reads! We've joined with Bookshop.org to offer some of our fave books! Have a comment or suggestion? Email us at thecancerpod@gmail.com Follow us wherever you browse. We're always @TheCancerPod: Instagram Bluesky Facebook LinkedIn YouTube THANK YOU!!

Text Dr. Lenz any feedback or questions Navigating Chronic Pain: Insights and Support with Michelle Marikos: Part 1In this episode, we transition from clinical perspectives on fibromyalgia to the lived experiences of chronic pain sufferers. Special guest Michelle Marikos shares her profound journey through chronic pain, surgeries, and the challenging world of opioid treatment. Highlighting the importance of peer support and clear communication, Michelle discusses her work with the PEER method, which supports both patients and healthcare providers. Her story underlines the interconnectedness of chronic pain with family and community, advocating for empathy and effective communication in managing pain. This conversation offers vital insights for both patients and providers, emphasizing that while a cure may not be immediate, there are ways to live a meaningful life alongside chronic pain.00:00 Introduction to Michelle's Journey00:49 Meet Michelle Marikos02:42 Michelle's Early Life and Injury04:02 The Struggle with Chronic Pain10:05 Discovering ADHD and Its Impact15:03 The Role of Family in Chronic Pain17:28 The PEER Method and Provider Training19:35 Expectations and Misunderstandings in Chronic Pain28:14 Reflections on Medical Training and Communication31:31 Conclusion and Final Thoughts Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That's why I created this space: to offer education, validation, and hope. If you've been told fibromyalgia “isn't real” or that it's “all in your head,” know this—I see you. I believe you. You're not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you'll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn't replace personal medical advice.* ...

What happens when a woman, already stretched thin by life's demands, gets sick? Too often, she's left to navigate a maze of doctors, insurance companies, and well-meaning advice, alone. But as women's wellness advocate Rebecca Bloom reminds us, we shouldn't have to. In this powerful conversation, Rebecca shares her journey from corporate law to women's health advocacy, inspired by her mother's breast cancer diagnosis. For nearly 30 years, she has guided women through the overwhelming realities of the healthcare system, offering them clarity, strategy, and most importantly, support. Together, Nicola and Rebecca dive into the practical and emotional tools every woman should know when facing a health challenge: Why appointing a personal “Chief of Staff” can be a game-changer for managing care. The importance of reaching out to HR, case managers, and providers before problems arise. How to choose insurance the smart way — starting with your doctors, not the price tag. Why you should never “panic pay” medical bills (and how to catch common errors). How to set boundaries with others and protect your energy during recovery. Finding balance between evidence-based medicine and complementary holistic care. Rebecca's legal expertise and advocacy work shine through as she gives women the confidence to ask for help, take control of their healthcare decisions, and reject the outdated idea that illness must be endured in silence. If you or someone you love is navigating illness, this episode is a must-listen. You'll walk away with tools to advocate for yourself, protect your energy, and build a strong support system around you — because healing should never be a solo journey. Links WEBSITE: WhenWomenGetSick.com

On this episode of Cancer Registry World, we shine a spotlight on The Mesothelioma Center in Orlando, Florida—a trusted resource dedicated to supporting patients and families navigating a mesothelioma diagnosis. Joining us are Jose Ortiz, Medical Outreach Liaison, and Karen Selby, Registered Nurse and Board-Certified Patient Advocate, who share how patient education, advocacy, and the power of cancer registry data come together to improve lives.

Knowledge is power over a serious health condition w/Kimberly NashHost of The Chronic Truth Podcast, Advocate for Chronic IllnessesCertified Patient Health Leader, Host -The Chronic Truth podcast, Pres. -The Bonnie Morgan Foundation. Living and thriving with MS and End stage liver diseaseFighting serious health conditions while owning and operating 4 companies (in a male dominated field), a foundation and now hosting a podcast featuring real stories of patients with serious health conditions. Bringing a community together one patient, one story at a time.Link:https://www.chronictruthpodcast.com/https://www.instagram.com/chronic.truth.podcastTags:Business Owner,Chronic Illness,Entrepreneur,Healthcare Advocate,Patient Advocate,Professional Women,Survivor,Women Empowerment,Women Owned Business,Knowledge is power over a serious health condition w/Kimberly Nash,Phantom Electric Ghost Podcast,Podcast,Live Video Podcast Interview,Interview,PodmatchSupport PEG by checking out our Sponsors:Download and use Newsly for free now from www.newsly.me or from the link in the description, and use promo code “GHOST” and receive a 1-month free premium subscription.The best tool for getting podcast guests:https://podmatch.com/signup/phantomelectricghostSubscribe to our Instagram for exclusive content:https://www.instagram.com/expansive_sound_experiments/Subscribe to our YouTube https://youtube.com/@phantomelectricghost?si=rEyT56WQvDsAoRprRSShttps://anchor.fm/s/3b31908/podcast/rssSubstackhttps://substack.com/@phantomelectricghost?utm_source=edit-profile-page

Drew's LinkedIn: https://www.linkedin.com/in/drew-harrison-a67285b/Inato: https://go.inato.com/3VnSro6CRIO: http://www.clinicalresearch.ioMy PatientACE recruitment company: https://patientace.com/Join me at my conference! http://www.saveoursites.comText Me: (949) 415-6256Listen on Spotify: https://open.spotify.com/show/7JF6FNvoLnBpfIrLNCcg7aGET THE BOOK! https://www.amazon.com/Comprehensive-Guide-Clinical-Research-Practical/dp/1090349521/ref=sr_1_1?keywords=Dan+Sfera&qid=1691974540&s=audible&sr=1-1-catcorrText "guru" to 855-942-5288 to join VIP list!My blog: http://www.TheClinicalTrialsGuru.comMy CRO and Site Network: http://www.DSCScro.comMy CRA Academy: http://www.TheCRAacademy.comMy CRC Academy: http://www.TheCRCacademy.comLatinos In Clinical Research: http://www.LatinosinClinicalResearch.comThe University Of Clinical Research: https://www.theuniversityofclinicalresearch.com/My TikTok: DanSfera

Today on The Cameron Journal Podcast we are joined by Melissa Winger who is an author and patient advocate after navigating the healthcare system for her special needs child. We have been having an on-going conversation on this show about the healthcare system and this continues that conversation. You can find her book here: https://www.whocaresbooks.com

Send us a textThis week's newsmaker, Dutch Liver Patients Association President Jose Willemse, joins Roger Green to discuss the patient screening program at this year's EASL Congress, which took place in Amsterdam, and the general idea of what constitutes a patient-sensitive dialogue. Jose describes the phenomenal level of interest in the screening activity, in which hepatologists and APPs scanned 400 people per day for MASLD and MASH. Boosted by significant mass publicity in Amsterdam, the number of people seeking screening exceeded the 400/day quota, with some arriving in line hours before the scheduled start time and others traveling for hours to reach the site. Jose believes that with adequate publicity, efforts like these could be replicated around the world, but that the healthcare system lacks the necessary resources to do so. In terms of physician-patient dialogues, Jose emphasized the importance of sensitive yet frank conversations and helping patients appreciate the successes they are achieving. 

Emma Cooksey is a writer, speaker, and patient advocate. She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health issues. In 2020, Emma launched a weekly podcast, “Sleep Apnea Stories”  to break down stereotypes of sleep apnea while also raising awareness of symptoms and treatment options.In her current role as Sleep Apnea Program Manager, Emma runs Project Sleep's Sleep Apnea Education and Awareness Program. Through this program, she develops and implements new awareness and educational initiatives, events, and activities to empower people with sleep apnea to seek diagnosis, support, and care. SHOWNOTES:

In this episode of To Care Is Human, Terri Ipsen talks with Susan Osborne about the power of words in healthcare. Based on her PX blog, “Say this instead of,” Susan shares practical tips and real examples of how small language changes can ease anxiety, build trust, and improve patient experience. Learn how intentional communication can make a lasting difference in patient care across all healthcare settings. 

Supporting someone going through cancer - what's the best way to do it when you don't know what to say? Ruth Fein has a bunch of interesting titles. Medical/science reporter. Award-winning author. Patient engagement leader. Motivational speaker. Ruth is a globally recognized patient advocate leader with a proven track record bringing together the voice of the patient, not-for-profit sector, industry and academia in the hematology/oncology space. In episode 579 of the Fraternity Foodie Podcast, we find out why Ruth chose Utica College for her undergraduate experience, how her rare blood cancer shaped her work as a journalist and patient advocate, what inspired her to write The Big C² and how it's different from other books, what is the best way to support someone going through cancer, how you can recognize red flags in your own health, what are some phrases to avoid when talking to someone who has cancer, what tools or perspectives have helped people she's interviewed to move forward, how to make the most of that time with doctors and truly advocate for themselves, and what college students need to know about the future of cancer treatment.

In this episode, we continue with a special series close to my heart: Decoding Destiny: Navigating Breast Cancer with Genetic Insight. I'm joined by Kathy Baker, patient advocate and founder of My Faulty Gene to explore the power of genetic testing—particularly cascade testing—and how it can help both you and your family take control of your breast cancer risk. Kathy shares her compelling personal story and how it inspired her to launch My Faulty Gene, a nonprofit organization that provides education, emotional support, and financial assistance for genetic testing. You'll learn all about the importance of cascade testing for families, how genetic knowledge can lead to proactive screenings and preventive health measures, and how advocacy is truly paving the way for more accessible care. Whether you're facing a BRCA-positive diagnosis, considering genetic testing, or looking for support navigating hereditary cancer risk, this is one conversation that you'll want to listen to - and share with your entire family.  Thank you to Merck and AstraZeneca for making this episode possible!

Doris Zallen, PhD, is Professor Emerita of Science Studies and Humanities at Virginia Tech. Her research explores personal, family, and societal issues arising from advances in genetic testing and gene therapy. Zallen is the author of two books about genetic testing and is developing an online tool to help people make informed choices about testing. Zallen […] The post Genetic Testing; Conversation with a Researcher and Patient Advocate (HLOL #260) appeared first on Health Literacy Out Loud Podcast.

TRIGGER/CONTENT WARNING: eating disorders, weightDina dishes with Quinn Haisley (they/she), a non-binary, queer, and neurodivergent eating disorder dietitian who shares her expertise in working with LGBTQ+ and neurodivergent populations.After originally majoring in philosophy for their undergrad degree, Quinn chose to shift gears and returned to school to study nutrition, receiving an associate's degree from LaGuardia Community College and an MS from New York University, where they also completed their dietetic internship.Quinn started working in the eating disorder field 5 years ago and now works full-time at their own private practice. Quinn is passionate about breaking out of the cookie-cutter eating disorder treatment model and bringing social justice into ED recovery.Learn more about Quinn at www.practiceerosnutrition.com and https://www.instagram.com/practice_eros_nutrition/.----Check out our podcast in video format on DishWithDinaTV: https://www.youtube.com/user/DishWithDina?sub_confirmation=1Join our mailing list to stay connected, stay informed, receive exclusive offers, and be a part of the DishWithDina community: ⁠https://forms.gle/932HAWCu1r42dPCo9If you enjoyed this podcast, please subscribe, leave a review, and share it with others! You can also submit listener feedback or request to be a guest on a future episode by completing this form: ⁠https://forms.gle/EFYX7Gshbjx9cCKfA----DISCLAIMER: The purpose of this podcast is to entertain, educate, and inform, but it is not to be taken as medical advice. Please seek prompt, qualified medical care for any specific health issues and consult your physician or health practitioner before starting a new fitness regimen, herbal therapy, or other self-directed treatment.

Hetlena Johnson is a Patient Advocate, Author, Community Organizer, Retired Educator and Lupus Warrior. She is devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life's challenges with laughter and spirited resilience, she believes in living your best life while living with lupus.

As AI becomes a more integrated part of our daily lives, it is vital that we consider all stakeholder perspectives to enable us to better foster collaboration for effective AI integration in scientific publishing. In this episode we will explore AI's transformative impact on the creation and dissemination of scientific content, addressing the real-world challenges and diverse perspectives needed to harness its full potential. By considering the opportunities and barriers  (real and perceived) to AI adoption, we can distinguish how these challenges vary among stakeholders from a pharma, publisher, and patient advocate perspective. . Joining us for this conversation is Stephen Griffiths, Publications Head at GSK; Stephanie Preuss, Director of Content Innovation at Springer Nature; and Stephen Rowley, Patient Advocate and Director at Artension.To join ISMPP, visit our website at https://www.ismpp.org/ This episode is generously sponsored by Avalere Health.

This episode explores the evolution of a pediatric Patient Experience. Dive into core values, shared ownership, and practical strategies for building trust, driving change, and creating meaningful experiences for children, families, and staff.

Driven by her own daughter's diagnosis of 33 food allergies, Sherrina Gibson is passionate about food allergy inclusion. Founder and CEO of Carter Consulting, Sherrina brings a community-first, evidence-based approach to everything she does whether she's helping clinics tell their story through data or advancing food allergy awareness at the systems level. In this episode, Sherrina shares more about her impactful work and provides details on Feeding Allergy Awareness RVA, an upcoming event bringing together education and collaborative solutions for support in the food allergy community. Listen now and join us at the event in Richmond on May 15!Sherrina Gibson is the Founder and CEO of Carter Consulting, a nationwide firm that helps health organizations use data to drive equity and impact. Her passion is advancing food allergy inclusion in public health research, quality improvement, and within community organizations, inspired by her daughter's journey with multiple food allergies and asthma. Whether she's helping clinics tell their story through data or advancing food allergy awareness at the systems level, Sherrina brings a community-first, evidence-based approach to everything she does.To register for Feeding Allergy Awareness RVA (5/15/25) visit: https://www.wric.com/calendar/?_escaped_fragment_=/show?start=2023-10-25#!/details/feeding-community-health-rva-solutions-for-food-allergies/15433146/2025-05-15T09To learn more about Richmond Food Allergy Support visit: https://www.facebook.com/groups/375242322502115/?locale=zh_CN

Antibody-drug conjugates (ADCs) are novel therapeutic agents designed to target specific tumor markers with potent anticancer drugs. The Association of Cancer Care Centers (ACCC) is dedicated to providing up-to-date information on ADC treatment management. In this episode, CANCER BUZZ speaks with Nancy Mallett, a patient advocate, to discuss the patient's perspective and experience receiving treatment for gynecologic cancers, particularly with ADCs such as mirvetuximab soravtansine-gynx. “[Providers] giving me the information and allowing us to decide together, instead of just telling me, makes me feel more cared about and that I'm not just a number, I'm a person. They care about what I think, and look at my life and what it can do for me.” – Nancy Mallett   Nancy Mallett Patient Advocate   Resources:  FDA Approval Summary: Mirvetuximab soravtansine-gynx for FRα-positive, Platinum-Resistant Ovarian Cancer - https://bit.ly/4is00nD  Society of Gynecologic Oncology (SGO): Gynecologic Cancer Resources for Patients and Their Families - https://bit.ly/4jpYaoP  ASCO: Antibody-Drug Conjugates in Gynecologic Cancer - https://bit.ly/42GP5k8  Society of Gynecologic Oncology Journal Club: The ABCs of ADCs (Antibody drug Conjugates) - https://bit.ly/42U2962  Antibody-Drug Conjugates in Gynecologic Cancers - https://bit.ly/4cLYECZ    Funder Statement  This program is supported by AbbVie.   

In this special episode, host Melissa Berry is joined by Harjeet Kaur, a Stage 4 cancer survivor, patient advocate, speaker, influencer, and founder of Chai and Hope, a support community for South Asian cancer patients. Harjeet is dedicated to breaking the stigma around cancer, fertility loss, and hair loss due to treatment—especially within the South Asian community. After her cancer diagnosis and stem cell transplant, Harjeet turned her pain into purpose by breaking down barriers within her own family. While she received love and support, the topic of cancer was never discussed. Harjeet found a way to open up that conversation with her own family and now helps others do the same. We explore the emotional and familial challenges of fertility and hair loss—issues deeply significant in South Asian culture—and how Harjeet overcame these obstacles. She shares how founding Chai and Hope has created a supportive space for South Asian cancer patients. This conversation is about breaking stigma, overcoming family barriers, and finding strength through shared stories.  

Dr. Hoffman continues his conversation with Dr. Julie Siemers, a nurse educator and author of “Surviving Your Hospital Stay: A Nurse Educator's Guide to Staying Safe and Living to Tell About It.” 

Dr. Julie Siemers, a nurse educator and author of “Surviving Your Hospital Stay: A Nurse Educator's Guide to Staying Safe and Living to Tell About It,” details the importance of patient safety in hospitals, the dangers of medical errors, and how patients and their families can advocate for better care. Dr. Siemers talks about the critical role of nurses, the hierarchy within the nursing profession, and the importance of effective communication between healthcare providers and patients. She also offers practical advice on dealing with high-risk medications, leveraging AI in healthcare, and ensuring better health outcomes by being informed and proactive.

Dr. Eithan Haim is the surgeon who blew the whistle on a Texas hospital's use of trans treatments on minors - and subsequently faced an intense, years-long criminal investigation from the Biden DOJ. Chloe Cole is a former trans kid and Patient Advocate for the nonprofit Do No Harm, which fights to protect minors from gender transition procedures.   They joined Rep. Crenshaw on March 12th for DeTrans Awareness Day and the reintroduction of Rep. Crenshaw's bill to ban federal funding for children's hospitals that perform gender transition procedures on minors. Dr. Haim tells the story of his persecution by the Biden DOJ and the medical malpractice being committed by some pro-trans doctors and hospitals. Chloe exposes the dark reality of how kids are manipulated by social media and unethical doctors into undergoing irreversible procedures. They also discuss the impact of President Trump's executive orders and the upcoming legal/legislative battles to protect minors from these harmful procedures.   Follow Chloe on X at @ChoooCole and Dr. Haim at @EithanHaim.

I'm sharing four health trends I saw in 2024 that I'll be talking a lot more about now that I'm back from maternity leave plus some personal updates and announcements! Make sure we're connected https://getwellbe.com/subscribe/ and https://www.instagram.com/getwellbe/