Podcasts about Sins Invalid

Today Christina talks to Ariel about what it's been like to live as a solarpunk with a visible - and then invisible - disability. Science fiction has spent decades dreaming of how future tech will make disabled people able to function as if they were fully abled. Now solarpunk has arrived on the scene to ask why should disabled bodies have to always be the ones to adapt? It can be uncomfortable, intrusive - not to mention expensive. Solarpunk wonders why can't cities, society, workplaces, and the like be the ones to use the tech to make themselves more accessible to and inclusive of disabled people?Tune in as Ariel and Christina discuss the portrayal of disability in science fiction and solarpunk and how having to suddenly live with a disability opens your eyes to many of the ways cities fail people with disabilities.Links:The Spoon Theory: https://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/The Place of Disability in a Solarpunk Future: https://sammylincroft.medium.com/the-place-of-disability-in-a-solarpunk-future-1db5e40ddb55r/solarpunk plea for solarpunk not to exclude the disabled: https://www.reddit.com/r/solarpunk/comments/oxpj34/please_dont_exclude_disabled_folks_from_a/Disability Justice page by Sins Invalid: https://sinsinvalid.org/10-principles-of-disability-justice/"Disabled People Destroy Science Fiction" Uncanny Magazine: https://www.uncannymagazine.com/article/the-disabled-people-destroy-science-fiction-manifesto/ Hosted on Acast. See acast.com/privacy for more information.

It's episode 206 and time for us to talk about the genre of Cultural Studies! We discuss bureaucracy, affluenza, dinosaurs, Dungeons & Dragons, Batman, The Fast and the Furious, and more! You can download the podcast directly, find it on Libsyn, or get it through Apple Podcasts or your favourite podcast delivery system. In this episode Anna Ferri | Meghan Whyte | Matthew Murray

Today I'm joined by Dr. Pau Abustan and Dr. Shayda Kafai to discuss the intersections of queerness, disability justice and mentorship for BIPOC scholars.  The episode covers the principles of disability justice, personal strategies for self-care, and the importance of building supportive communities and mentorship networks.  Our guests also open up about the challenges that queer, crip, BIPOC scholars face and provide insights into advocating for inclusive and accessible educational spaces. You can reach Dr. Pau on Instagram @dr_pau_phd and Dr. Shayda on Instagram @shaydakafai and on her website: shaydakafai.com Here are the names and links to people and concepts mentioned on the show:  -Margaret Price (Mad at School) -Molly Benitez (affects of labor) -Patty Berne -Leroy F Moore Jr -Leah Lakshmi Piepzna-Samarasinha -10 Principles of Disability Justice: https://www.sinsinvalid.org/blog/10-principles-of-disability-justice -Sins Invalid: https://www.sinsinvalid.org/ -Crip time: https://dsq-sds.org/index.php/dsq/article/view/5824/4684  -Spoon Theory: https://butyoudontlooksick.com/category/the-spoon-theory/ -access is love: https://disabilityvisibilityproject.com/2019/02/01/access-is-love/ One more spot left for my limited time 50% off coaching. Book a consultation and reserve your spot today!  Order my new co-authored graduate school admissions book for first-gen BIPOCs by going to ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠isgradschoolforme.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.  ⁠⁠Book me⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ to speak at your upcoming professional development event.  Get my free 17-page ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Grad School Femtoring Resource Kit⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, which includes essential info to prepare for and navigate grad school.  Follow me on your favorite social media platforms: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠TikTok⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, and ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Twitter⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Support our free resources with a ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one-time or monthly donation⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. To download episode transcripts and access more resources, go to my website: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://gradschoolfemtoring.com/podcast/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠   This podcast is a proud member of the Boundless Audio Podcasting Network. *The Grad School Femtoring Podcast is for educational purposes only and not intended to be a substitute for therapy or other professional services.*  Learn more about your ad choices. Visit megaphone.fm/adchoices

Episode 52 of The Chemical Sensitivity Podcast is available now!https://www.chemicalsensitivitypodcast.org/It's called "Crip Kinship."I'm speaking with Shayda Kafai, Ph.D., author of the 2021 book, "Crip Kinship. The Disability Justice & Art Activism of Sins Invalid."Shayda is an associate professor in the Ethnic and Women's Studies Department at California State Polytechnic University, in Pomona, California. You'll hear Shayda talk about Sins Invalid,a disability justice-based performance project and what she calls "crip kinship" and the importance of finding connections online with others with disabilities. Shayda explores the notion of dreaming and dream work, in which we can "embody recurring hope, active love, critical resistance, and radical change," the power of telling stories, and the need to love ourselves. I hope you enjoy the conversation. Please subscribe where you get your podcasts.About Shayda Kafai:https://www.shaydakafai.com/Support the Show.Special thanks to the Marilyn Brachman Hoffman Foundation for its generous support of the podcast.If you like the podcast, please consider becoming a supporter! Support the podcast. Find the podcast on Patreon. If you like, please buy me a coffee. Follow the podcast on YouTube! Read captions in any language. Please follow the podcast on social media:FacebookTwitterInstagramTikTokSponsorship Opportunites Are you an organization or company interested in helping to create greater awareness about Multiple Chemical Sensitivity and Chemical Intolerance and/or looking for sponsorship opportunities? Please email us at info@chemicalsensitivitypodcast.org

The vast majority of care recipients are exclusively receiving unpaid care from a family member, friend, or neighbor. The rest receive a combination of family care and paid assistance, or exclusively paid formal care. Whether you're a paid home care provider, or rely on personal assistance to meet your daily needs, or a family member caring for a loved one, the nature of the working relationship depends on mutual respect and dignity. During this week's anniversary of the Americans with Disabilities Act, we'll revisit the dynamic and complex relationship of care receiving and giving. Learn more about the story and find the transcript on radioproject.org. Making Contact digs into the story beneath the story—contextualizing the narratives that shape our culture. Featuring narrative storytelling and thought-provoking interviews. We cover the most urgent issues of our time and the people on the ground building a more just world. EPISODE FEATURES: This episode features Camille Christian, home care provider and SEIU member Camille Christian & Brenda Jackson, home care providers & SEIU members; Patty Berne, co-founder and director, Sins Invalid; Jessica Lehman, executive director, San Francisco Senior and Disability Action; Kenzi Robi, president, San Francisco IHSS (In Home Supportive Services) Public Authority Governing Body; Rachel Stewart, queer disabled woman passionate about disability and employment issues; Alana Theriault, disability benefits counselor in Berkeley, California; Ingrid Tischer, director of development, Disability Rights Education & Defense Fund (DREDF); and Alta Mae Stevens, in-home caregiver. MAKING CONTACT: This episode is hosted by Laura Flynn & Anita Johnson. It is produced by Anita Johnson, Lucy Kang, Salima Hamirani, and Amy Gastelum, and Contributing Producers, Alice Wong and Stephanie Guyer-Stevens. Our executive director is Jina Chung.  MUSIC: This episode includes Dexter Britain: The Time To Run (Finale), Gillicuddy: Adventure, Darling, Steve Combs: March, Jason Shaw: Running Waters, Jared C. Balogh: BRICK BY BRICK DAY BY DAY, Jared C. Balogh: INCREMENTS TOWARDS SERENITY, Nheap: Crossings, Cherly KaCherly: The Hungry Garden, Trio Metrik: Vogelperspektive, & Kevin MacLeod: Faster Does It. Learn More: UCSF: UCSF Study Projects Need for 2.5M More Long-Term Care Workers by 2030 SEIU: Longterm Care Workers Disability Rights Education & Defense Fund Disability Visibility Project Hand in Hand: The Domestic Employers Network National Disability Leadership Alliance Senior and Disability Action Sins Invalid San Francisco In Home Supportive Services Public Authority Family Caregiver Alliance  

Janie Mejias, the U.S. Organizer for Women Enabled International (WEI), discusses her advocacy work for the rights of women with disabilities, the intersectionality of feminism and disability, and WEI's mission & resources.This episode was made possible thanks to a generous grant from The New York Bar Foundation.**Show Notes**- Women Enabled International: https://womenenabled.org/- U.S.  Gender and Disability Justice Alliance https://womenenabled.org/alliance/- Generation Equality Forum and Inclusive Generation Equality Collective: https://womenenabled.org/impact/#generationEquality- accountABILITY Toolkit: Using the Inter-American Human Rights System to Advance the Rights of Women and Girls with Disabilities : https://womenenabled.org/reports/using-the-inter-american-human-rights-system-to-advance-the-rights-of-women-and-girls-with-disabilities/ - Summary of proposed new rule to Section 504: https://www.hhs.gov/about/news/2023/09/07/hhs-issues-new-proposed-rule-to-strengthen-prohibitions-against-discrimination-on-basis-of-disability-in-health-care-and-human-services-programs.html - 10 Principles of Disability Justice: https://www.sinsinvalid.org/blog/10-principles-of-disability-justice - Sins Invalid, creator of the Disability Justice framework: https://www.sinsinvalid.org/ - More about Janie Mejias: https://womenenabled.org/teams/janie-mejias/ - Email Janie Mejias at  j.mejias@Womenenabled.org  Follow Women Enabled International!- Facebook: https://www.facebook.com/WomenEnabled.org- Twitter (@womenenabled): https://twitter.com/womenenabled - Instagram (@womenenabled): https://www.instagram.com/womenenabled/ - U.S.  Gender and Disability Justice Alliance  Facebook  https://www.facebook.com/USGDJASupport the showTo view the video of this episode with closed captioning, ASL interpretation, and/or Spanish subtitles, visit our YouTube Channel: https://www.youtube.com/playlist?list=PL0L4INYxuDLx8b8oFTpaXbe42NLmZBKDY.(The views, information, or opinions expressed during the "Empire State of Rights" podcast are solely those of the individuals involved and do not necessarily represent those of Disability Rights New York.)

Episode Summary This week on Live Like the World is Dying, Margaret and Leah talk about disability, preparedness, and covid. Guest Info Leah Lakshmi Piepzna-Samarasinha (They/She) is a writer and structural engineer of disability and transformative justice work. Leah can be found at brownstargirl.org, on Instagram @leahlakshmiwrites, or on Bluesky @thellpsx.bsky.social Their book The Future is Disabled: Prophecies, Love Notes, and Mourning Songs can be found: https://bookshop.org/p/books/the-future-is-disabled-prophecies-love-notes-and-mourning-songs-leah-lakshmi-piepzna-samarasinha/18247280 Their book Care Work: Dreaming Disability Justice can be found: https://bookshop.org/p/books/care-work-dreaming-disability-justice-leah-lakshmi-piepzna-samarasinha/16603798 Host Info Margaret (she/they) can be found on twitter @magpiekilljoy or instagram at @margaretkilljoy. Publisher Info This show is published by Strangers in A Tangled Wilderness. We can be found at www.tangledwilderness.org, or on Twitter @TangledWild and Instagram @Tangled_Wilderness. You can support the show on Patreon at www.patreon.com/strangersinatangledwilderness. Transcript Leah on Disability and Preparedness Resources Mentioned: StaceyTaughtUs Syllabus, by Alice Wong and Leah: https://disabilityvisibilityproject.com/2020/05/23/staceytaughtus-syllabus-work-by-stacey-milbern-park/ NoBody Is Disposable Coalition: https://nobodyisdisposable.org/ Power To Live Coalition: https://www.powertolivecoalition.org/ Disability Visibility Project article about Power to Live : https://disabilityvisibilityproject.com/2019/10/26/call-for-stories-powertolive/ Power to Live survival skillshare doc: http://tinyurl.com/dissurvival Long winter crip survival guide for pandemic year 4/forever by Leah Lakshmi Piepzna-Samarasinha and Tina “constant tt” Zavitsanos https://www.tinyurl.com/longwintersurvival Pod Mapping for Mutual Aid by Rebel Sydney Rose Fayola Black: https://docs.google.com/document/d/1-QfMn1DE6ymhKZMpXN1LQvD6Sy_HSnnCK6gTO7ZLFrE/mobilebasic?fbclid=IwAR0ehOJdo-vYmJUrXsKCpQlCODEdQelzL9AE5UDXQ1bMgnHh2oAnqFs2B3k Half Assed Disabled Prepper Tips for Preparing for a Coronavirus Quarantine. (By Leah) https://docs.google.com/document/d/1rIdpKgXeBHbmM3KpB5NfjEBue8YN1MbXhQ7zTOLmSyo/edit Sins Invalid Disability Justice is Climate Justice: https://www.sinsinvalid.org/news-1/2022/7/7/disability-justice-is-climate-justice Skin Tooth and Bone: The Basis of Movement is Our People (A disability justice primer): https://www.sinsinvalid.org/disability-justice-primer DJ Curriculum by Sins: https://www.sinsinvalid.org/curriculum Partnership for Inclusive Disaster Strategies: https://disasterstrategies.org/ Live Like the World is Dying: Leah on Disability & Preparedness **Margaret ** 00:15 Hello, and welcome to Live Like the World is Dying, your podcast for what feels like the end times. I'm your host, Margaret killjoy. And I always tell you that I'm excited about episodes, but I'm really excited about this episode. It put me in a better mood than when I started the day that I get to record this episode. Because today, we're going to be talking about disability and preparedness. We're gonna be talking about Covid abandonment. And we're gonna be talking about a lot of the questions that... a lot of the questions that people write us to talk about that they have about preparedness and I think that we can cover a lot of those. Not me, but our guest. But first before the guest, a jingle from another show on the network. Oh, the network is called Channel Zero Network. It is a network of anarchists podcasts and here's a jingle. [sings a simple melody] **Margaret ** 01:08 Okay, and we're back. So, if you could introduce yourself with your name, your pronouns, and then I guess just a little bit about how you got involved in thinking about and dealing with disability and preparedness. **Leah ** 02:00 Sure. Hi, my name is Leah Lakshmi Piepzna-Samarasinha. She and They pronouns. Right now I live in Pocomtuc and Nipmuc territories in Western Massachusetts. And that is a great question. I will also just plug myself briefly and be like I'm a disability justice and transformative justice old sea-hag, aging punk of color who has written or co-edited ten books and done a lot of shit. Okay, so when I was sitting on the toilet thinking about "What do I want to tell Margaret when we get on the show?", I was actually thinking that my disability and my preparedness routes are kind of one in the same because... So I'm 48 [years old] now and I got sick when I was 21-22. So like back in 96-97. And, it was the initial episode that I got sick with chronic fatigue, ME, and fibromyalgia. And I was just super fucking ill and on the floor and was living in Toronto as somebody who was not from Canada. And, you know, I was just sick as hell, like crawling to the bathroom, like sleeping 18 hours a day. The whole nine. And I'd been really really deeply involved in anarchist of color and prison abolitionist and antifascist organizing and lots of stuff. I had a community, but it was 1997, so most of my community was just like, "What you're sick? Why didn't you make it to the meeting? We have to write all the prisoners with the [untranslatable]." And I was just like, "I just.... Okay, great." Like it was a really different time. There was no GoFundMe, mutual aid, Meal Train, someone brought me some soup. Like, know you, we weren't really doing that. And people really did not have a consciousness around, "You can be a 22 year old brown, nonbinary femme and be really, really sick and be disabled." So something I think a lot, and I've said before, is that disabled people are really used to the concept that no one is going to save us and we are really not surprised when state systems abandoned us because we live in that all the time. And so I was just like this little 22 year old sicko weirdo who'd read my Octavia Butler--and, in fact, that was part of the reason why I was like, "Toronto, great, there's gonna be more water and less heat." Okay, wasn't totally right about that. But, you know, I mean, I really had to save myself and I kind of was like, "Alright, I don't have..." Like, I'm working off the...I'm working under the table. I have hardly any money. I'm gonna make my own herbal medicine. I'm gonna grow a lot of what I eat from my backyard. I'm going to store water. I'm going to run a credit card scam and get a lot of dried goods and live off of those for like a year. [Margaret Hell Yeahs] Yeah, stuff like that. I feel like from there, over the last, you know, 26 years like it's....like, that's the route. The route was, you know, similar to a lot of people, I think of my generation, we were like on the cusp of looking at the current crises of like hot fascist war, hot eugenics war, hot climate crisis, and being like, "It's coming," and I started being like, "Yeah, like don't...don't think that it's all going to work out okay and that somebody else is going to fix it for you." So, I would say that's where my initial route--and then do you want to jump in? Or can I jump ahead like 20 years or something? **Margaret ** 05:10 Honestly, you could jump ahead 20 years later. I'm gonna come back and make you talk more about Octavia Butler. But we'll do that later. **Leah ** 05:16 Let's talk more about Octavia Butler because I have a lot of stuff about Octavia Butler and how she thought of--and I think sometimes misused--like nowadays [this is probably not the word but it's untranslatable] and also about disability. [Margaret "Oooohs" curiously] I know. We can get to that. Okay, so that's one route. And then, you know, I mean, I was always kind of like a little weirdo, where it's like, yeah, I grow most of my own food--or as much as I can--and it's not a fun green hobby. It's like, I'm broke as fuck and I need to grow a lot vegetables that fucking, you know, I can mulch and that can stay growing into December, you know? I stashed stuff. Something I also think a lot, is that as disabled people--and we talked about this a little bit when we're emailing--I think we're always prepping whether we call it that or not. Like most disabled folks I know just do shit. Like if you get a prescription and you have extra, you store it, you know? Like, if you can get a double dose, you put that aside. And then maybe you have it for yourself. Or, there's so many disabled mutual aid networks I've been a part of where someone's--I mean, before Facebook clamped down, this is really common on a lot of Facebook disabled groups--someone would be like, "Yo, does anyone have an extra five pills of such and such?" and I've seen total strangers for 15 years of disability justice be like, "Yep, what's your address? I do. I'm gonna mail it to you. I have my old pain meds. I've got this. I've got that." But, um, yeah, like doing the jumping forward that I promised you, so for people who don't know, disability justice as a movement was founded around 2005 by a group, a small group of disabled Black, Asian, and poor and working class, white disabled folks, who were all pretty, you know, gay, trans, and radical. And they were like, "We want to bring a revolutionary intersectional out of our own lives and experiences and issues. We want to create a disability movement that's for us and by us that's not just white, single issue, often cis, often male, often straight." Like, we want to talk about the fact that 50% of bipoc folks who were killed by the cops are also disabled, deaf, neurodivergent, etc... just to give one example. So, you know, that was '05 in Oakland, you know, Patti Burn, LeRoy Moore, Stacy Milbern, Ely Claire, Sebastian Margaret, Stacey Milbern Park, you know, the six. And I was living in Toronto and I moved to Oakland in '07 and I was kind of around for some of the beginnings of it. There's two stories I want to bring in. One actually predates my move. It was right when I was getting ready to leave Toronto, I got invited to go to this reading by a bunch of queer--I think all white--disabled radical folks. And I was just like, "Oh?" And I did the whole, like, "Am I really disabled enough?" and then it was like, "Oh, it's gonna be really depressing." And then it was really awesome. And I was like, "Whoa, disability community. Life saving." But it was kind of one of my moments of being brought into the disability community because there was this writer who was there who, their reading series was actually a choose your own adventure where there's four disabled, queer, and trans folks who are having a sex party and the zombie apocalypse happens. And then they have to figure out how to survive it without abandoning each other. And it was all like, "Okay, you all get to the van, but then there's no ramp. What do you do? Oh! You get this accessible ramp, but it smells like perfume and somebody has NCS. What do you do? And I was just sitting there with my mouth open--and it was also interwoven with like, 'Yeah, and then somebody's fucking somebody else with like, you know, a dildo strapped to their prosthetic,'" and I was like, wow, I fucking love disability. Like, sign me up. But I gotta say briefly, that was one of my first examples of like, you know, there's a really important phrase in Disability Justice, which is, "No one left behind, " right? Like, that's one of the core organizing principles. And that was kind of.... Before I even heard that phrase, I was like, "Fuck like this is..."--because I'd been around antiauthoritarian, quasi prepper, like "shit's gonna happen, we have to get ready." But I was always kind of quiet in the corner closeting my disability being like, "Well, shit, like, what if I don't have my meds? Or what if I'm too.... What if I can't run away from, you know, the Nazis or the zombies because I have a limp and I walk with a cane? Like, what if?" And that was my first example of this cross disability fantasy space of like, "We're going to escape together and we're not going to let anyone get eaten and it's going to mean really being creative about access stuff." Okay so jump ahead to, right, then I moved to Oakland and then I ran into actual Disability Justice community through Sins Invalid, which is an incredibly important foundational Disability Justice group, and through a lot of friendships I started making with other QTBIPOC disabled folks and my really, really good friend Stacy Park Milbern, who, people should totally know her work. She's incredible. She was one of the best movement organizers that the movement has ever seen. And we met online. And she was living in Fort Bragg, North Carolina with her family on the base because her family's military. And she was a queer southern, working-class, Korean and white, you know, physically disabled organizer from when she was really young. And then she was like, "Okay, I love my family, but I'm literally hiding my gay books in the wall because my mom's Pentecostal." So, yeah, and she's like--I literally realized she tells the story a lot--she's like, "Yeah, like, I realized I hadn't really left the house for a couple months and like, this is gonna be it," and she's like, "I was literally watching Oprah. And Oprah said, 'No one's coming to save you.'" And she was like, okay. She's 21 years old. And then through online, disabled, queer of color community there was this--or she organized--this initiative called To the Other Side of Dreaming where she moved crosscountry with Mia Mingus, who's another queer Korean organizer who was a friend of hers, ad moved to the Bay Area. And so that was around 2010-2011. And then in 2011, what happens but the Fukushima nuclear accident, right, disaster? And we're all on the West Coast--and it's completely ridiculous bullshit, looking back on it now--but all of these Bay Area folks were like, "Oh my God! Radiation!" And some people pointed out, "Look, you know, we're not.... There's...it's a big ocean. The people who really have to worry are in Japan and areas around it, so whatever?" But it was one of those times where we were like, fuck, this is a really big nuclear accident and we are sort of close and it's making us think about disaster. And I remember just going to fucking Berkeley Bowl, which is this big, fancy, organic supermarket and people had bought out all of the burdock all the fucking seaweed. And I was like, "Oh, my God, these people." But out of that, Stacy started having conver--and I and other people who were in our organizing network of disabled, majority BIPOC--were like, "What are we going to as disabled BIPOC if there is an earthquake, fascism, like another big disaster? And Stacy said, really bluntly, she's like, "You know," and she was a power wheelchair user. She used a ventilator. You know, she's like, "Yeah, I am supported by electricity and battery dependent access equipment." And she's like, "Well, I'm going to be really honest, my plan has always been, if something happens, I'm just going to lay down in my bed and die, because I don't think that any emergency services are going to come save me and the power is going to run out in 48 hours. And then we were like, "Okay, that's super real. What if, through our amazing collective access stuff we're doing, we could figure out something else?" And we had this meeting at Arismendy bakery, which for folks who know, is like a worker owned co-op chain, Our friend Remedios worked there. It's wheelchair accessible. We met there after hours. And it was just like, 12-15 of us who started just sitting there and being like, "What are the resources we have? What are the needs we have? And we made this map, which I still have, which I think I shared with you, which is just like, "Apocalypse, South Berkeley/Oakland Map 2011," where we were like, "Okay, you know, when the power goes down, the communication goes down. We're gonna meet at this one traffic circle because people who are wheelchair users can roll up. And we're gonna bury note paper in a mason jar with pens and we're gonna leave notes for each other. But we're also going to agree to meet there the day after at noon." And I was like, okay, my collective house, the first floor is wheelchair accessible. We have solar, we have a landline. And we have a lot of space. So like, let's meet there. And then someone was like, "We've got the one accessible van. And we know, it's only supposed to fit 4 people, but we can fit like 12 in there." And we started.... Like, I just think about that a lot because it's, I think it was a really important moment where it was important...the stuff that we did like that--you know, the actual strategies and the resources we started talking about--but it was also that it was the first time in my life that I was like, "Okay, we're not--not only are we not going to just die alone in our beds, I'm also not going to be the one person who survives. Like, I can actually survive with, and because of, other people. And we're all disabled BIPOC with a couple of disabled white folks. And we can actually collectively strategize around that. And this will be my last leap forward, because I see that you're like, "I want to ask you stuff." So, you know, eight years go by, and in that time we all do an incredible amount of Disability Justice organizing and strategizing. And, you know, in 2019.... And a lot of it started to be around climate disaster on the West Coast. Like, I moved to Seattle in 2015. The wildfires started being really bad a year or two later. A lot of us were involved in mask distributions, just spreading information about smoke safety and survival. And then 2019 was the infamous year where the wildfires came back and Pacific Gas and Electric, in all of its fucking glory, which is the main--for people who don't know--it's the main utility electrical company in Northern California. They announced two days before wildfires were going to really impact the Bay, they were like, "Oh, so we've decided that our strategy is going to be that we're just going to shut down all the power in Northern California. **Margaret ** 14:52 No one uses that. [Sardonically] **Leah ** 14:53 No one uses that. And they're like, "Oh, if you have a medical need, call this number, and we'll make sure to leave it on at your house." and Stacey was, "Okay." She had just bought her house, the Disability Justice Culture Club in East Oakland, you know, which was her house but also a community center, de facto community center, that housed a lot of disabled folks of color. And she was like, "I was on the fucking phone for eight hours. Like, I never got through." And she and some comrades started this campaign called Power to Live where they were like.... It started out as, "Okay, we can't save everybody, but we're not going to just lay down and die. What do we do?" So it started out as like, okay, let's identify who has housing that still has power. There's some people in Richmond, there's some people in this neighborhood, but then it also developed into this thing where it was just this amazing crowdsource survivalist resource where it was everything from, she's like, "Here's a number. Here's an email. If you need something, text us, call us, email us. We have a team of eight people. We'll figure it out. If you have something to offer, do it too." And then some of it was that people were sharing everything from generator information, to generator shares, to people in different areas-- like I was in Seattle and we were like, "Okay, we will mail you generators and air purifiers, because it's obviously all sold out in the Bay, but we can get it here and get it to you." The thing that always stands out to me is people being like, "Oh, yeah, here's how you can use dry ice and clay pots to keep your insulin cold if refrigeration goes down." And there's a lot more I could say about that action and how amazing it was. But for me, when I think about the through line, I'm like, that moment in 2011, when we all got together, and were like, "What do we do?" we were prepping for what we couldn't fully predict, you know, the exact manifestation of eight years later. We're there and we're like, "Okay, there's wildfires, there's smoke, there's no fucking power, and we've not only built our organizing base, we built our relationships with each other so that we can actually trust each other and more or less know how to work together when this shit actually is hitting the fan to create something that's really life giving. Okay, I'll shut up. That was a lot. **Margaret ** 16:52 Now I have so many questions about all of it. **Leah ** 16:53 Yeah, ask me all the questions. **Margaret ** 16:55 Because there's a couple...there's a couple of questions and/or feedback that we get with Live Like, the World is Dying a lot. And some of them are very specifically disability related, and you covered most of them, but I want to highlight some of them. Like a lot of people write and are like, "Well, I rely on the following thing that is provided by civilization. So my plan is to lay down and die." Right? This is a--and I know you've kind of answered it--but I.... I want to ask more. Okay, I'll go through all the things. Okay. So to talk more about what "No One Left Behind," means? And then the other thing that really stands out to me is that, you know, when we were talking, when we were talking about what we were going to talk about on this on this episode, I was saying, okay, we can talk about, you know, making sure that preparedness is inclusive and open and includes disabled folks, or whatever, and you pointed out, really usefully, the, the necessity to reframe it. And I think that the story you just gave is a really beautiful example of this, where it's less about, like, "Hey, make sure to pay attention to the people who need canes," you know, or whatever, right? Like, you know, "make sure you keep track of folks based on disability." And more than like the thing you just described, is the thing that we're always trying to push, which is that you need to make a list of all the resources and needs within your community and then figure out how to meet those needs and instead of assuming that we can't meet those needs, figuring out how to actually do it. And so I love that it's actually like.... It's actually disability justice movements that we should be learning from, I mean, or participating in, depending on our level of ability, or whatever, but I just find that I find both of those things really interesting. And so I wonder if you have more that you want to say about alternatives to laying down and dying, and specifically, to tie into the other thing that I get asked the most or that I get the common feedback is--because we talk a lot about the importance of community for preparedness on this show--a lot of people don't feel like they have community and a lot of people write to be like, "I don't have any friends," or "I don't know any other people like me," or, you know. And so, I guess that's my main question is how do.... [Trails off] Yeah, how do? **Leah ** 19:22 So how do you make community when you don't have community? Alternatives to lying down and dying? And was there a third one in there? **Margaret ** 19:28 I was just highlighting how cool it is that y'all sat there and made a list of resources and needs, which is exactly what.... Instead of deciding things are impossible, just being like, "Well, let's just start doing them." You know? **Leah ** 19:40 And I think.... Okay, so I'll start there. Like I think that like.... You know, Corbit O'Toole, who's like a, you know, Disability Rights Movement veteran and like older Irish, disabled dyke, you know, in Crip Camp, the movie, she's like, "Disabled people live all the time with the knowledge that the society wants thinks we're better off dead," right? Like one...back in the day, you know, there's a--I think they're still active--one of the big Disability Rights direct action organizations was called Not Dead Yet, right? [Margaret Hell Yeahs] I think this is the thing is like I think that sometimes abled people or neurotypical people are not used to sitting down and making the list. And I think that even if disabled people aren't preppers, we're used to being like, "Okay, what do I need? Fuck, I need somebody to help me do my dishes. Oh, I can't bend over. I need to figure out what is the access tool that will allow me to pick up something from the floor when my that goes out? Like, if my attendant doesn't show up, can I have a..." You know, like, my friends always like, "Yeah, I've got a yogurt container by the bed in case my attendant doesn't show up so I can not piss the bed. I can lean over and piss in the yogurt container." Like there's a--and I think that.... God, I mean, there's been so many times over the years where I've done or been a part of doing like Disability Justice 101 and me and Stacy would always talk about crip wisdom and crip innovation and people will just look blank like "What are you talking about? You guys are just a bunch of sad orphans at the telethon." It's not just about making the list, it's also about how disabled disability forces you to be innovative. Like, Stacy would always share this story where she's like, "Yeah," like, she's like "Crip innovation is everything from," she's like, "I save a lot of time sometimes by pretending I can't talk when people come over and want to pray over me. You know, I just act like a mute and they fucking leave and they go on with their life," and she's like, "You know, I realized one day, if I took my sneakers off, I could ramp a step if it's just two steps. I could just put them there and I could roll up." Or I mean, there's a million examples.... Or like, because I think it's about prepping and about making the lists and it's also about whatever you prep for, there's always going to be the X Factor of "Oh, we didn't fucking expect that." And I think that's where a lot of prep falls apart is people have their "Dream Bunker." They're like, "Oh, okay, I know exactly what the threats are going to be." And then of course, it doesn't fucking happen that way. I really hope I can swear on your show. **Margaret ** 21:46 You can. Don't worry. **Leah ** 21:47 Great. So, I mean, one example I could give is I'm remembering at, you know, a Sins show when we were in rehearsal, where everyone drove over from Oakland in Patty's wheelchair accessible van, and then the ramp broken wouldn't unfold. So we just were like, alright, who do we know who has welding equipment? Who do we know has lumber? Like, I think we ended up going to a bike repair shop and then they had tools. And then we're like, okay, we'll just bring the rehearsal into the van and do it that way. Like, you have to be innovative. And that's a muscle that I think society doesn't teach you to flex and that often, I think that even people who.... I think there can be a lot of eugenics in prep, you know, whether people are overtly fascist or not, there's a real belief of like, "Oh, only the strong and smart," --which looks a certain way-- "survive," and that "We should use rational thinking to make it all work out." And I think a lot of crip intelligence or wisdom is actually knowing that shit can go sideways 48 different ways and you have to adapt. And you have to just kind of be like, "Well, let's try this." So I think that's one thing. And I think, you know, one thing I'll say is, yeah, just speaking to kind of the reframing we were talking about, I think it's less like, "Oh, remember the people with canes," but, I mean, that's good, but also knowing that we're already doing it and that abled people actually have a shit ton to learn from us. But also, I mean, something.... I mean, the title of my last book is "The Future is Disabled," and it comes from something--it's not unique thinking to me--it's something that a lot of disabled people have been thinking and saying throughout the pandemic is that we were already at like a 30% disabled world minimum and we're pretty close--we're probably at majority disabled right now. Because what, 2% of the world didn't get Covid? Like, how many people have Long Covid? How many people have complex PTSD? We're all sick, crazy, and, you know, needing access equipment. Disability is not out there. It's in here. Like there's no such thing as doing prep that's like, "Oh, only the three Uber Mensch are gonna survive." Like fuck that. And that actually--I mean, sorry, this might be a side note, but a lot of people have probably seen The Last of Us. And I'm just gonna SPOILER ALERT it. You know that famous episode three of those two gay bear preppers in love? Yeah, I loved a lot about it. I was so pissed at the ending, which I'm just going to spoil. So you know, the more artsy, non-prep guy....[interrupted] **Margaret ** 21:47 Yeah, they don't survive. **Leah ** 22:47 Well, no, but like, not only did they not survive but one of them gets chronically ill. And I was just like, grinding my teeth because it's like, "Oh, he's in a wheelchair. Oh, his hand tremors." And then they end up deciding to both kill themselves rather than do anything else. And I was so furious at it because I was like, these are two people who are so innovative. They have figured out all kinds of problem solving. They have an entire small city for themselves. And it's all like, "Oh, no, he can't get up the stairs." And I'm like, really? There was no accessible ranch house you couldn't of fucking moved to? **Margaret ** 24:38 Or like build a bedroom on the fucking ground floor. **Leah ** 24:40 Or youcouldn't get meds? You couldn't? I mean, when his hand was shaking, it was like, "Oh, it's so sad. He's being fed." I'm like, there's tons.... First of all, it doesn't suck to be fed. A lot of things that seem like a fate worse than death are not when you're in them. And also, there's like all kinds of adaptive utensils that they could have fucking raided from medical supply if he wants to feed himself. Or I'm sorry, there's no cans of Ensure? They absolutely have power. They couldn't have made smoothies? Like, what the fuck is this? But beyond that--and I think that a lot of people who have talked about that episode did, I think, have some good analysis of it where, you know, the whole way they set up their prep was they were like, "Oh, it's just the two of us," and the one super prepper guy was like, "I don't even want friends to come over." And the other guy was like, "Hey, actually, we need to make alliances because there's things they have that we don't. And we also need more than just the two of us because I love you, but I'm gonna kill you." And I think that's something to think about is really moving away from the idea that just your little you know, the utopic queer rural community that so many fucking city queers fantasize about or, you know, lover are going to be enough, because it's not. So that actually leads me to, "I don't have community. Where the fuck do I get it?" And I'm like, yeah, that's super real. Right? And I think it's something I actually wrote about in "The Future is Disabled" is that I have people be like--when I write about different crip communities, just even when I talk about stuff on Facebook.... Like my friend, Graham Bach, it's going to be his second year death anniversary in like two weeks, and he was like, you know, white, psychiatric survivor, super poor, amazing sweetheart of a human being, he died.... I mean, he died in his, you know, rent to your income apartment because he was really afraid to go to the hospital and he had cardiac stuff going on. And he was an anarchist, he was amazing, kind, complicated human being. And, I was writing about, like.... I'm going to tell the story and there's a couple things I want to pull out of it. So I was writing about meeting Graham when I was in my early 20s through radical Mad people community, and somebody was reading it and was like "That sounds so great." And I was like, "Yeah, it wasn't utopic. Like, I had to yell back at Graham because he would scream at me and I'd be like, "Shut the fuck up!" Like, there was so many fights. There was so much racism. There were so many older white cis dudes who had electroshock who were jerky or gross, you know? And I guess that was the thing is, I was like, they're like, "Well, how did you find each other?" And I was like, it wasn't perfect. Also, it was very analog working class. Like my friend Lilith Finkler, who is an amazing Moroccan, Jewish, working-class queer femme psych survivor, she would just go to the donut shop where everybody poor hung out and would talk to everybody who wass there who wass crazy who no one wanted to talk to and be like, "Hey, do you want to come hang out at this meeting at the fucking legal clinic? We have a room. We have a snack plate. I'll give you tokens. Let's organize." So I think that's the first thing is that it's not--and I don't mean this in a finger-wagging way--it's not automatic. And also, one of the really big ways that community is often ableist, and that a lot of us get cut out from it, is that a lot of us who need it the most are not particularly easy to love in ableist neurotypical worldview. It's like we're cranky, we're wounded, we're in a bad mood, we're weird. So a lot of the time, I think it's thinking about, first of all, what's one step, one move you can take towards it. Like, can you make one fucking acquaintance and build it. And really think about what it would mean to build some kind of relationship. I think the other thing that I really want to highlight is that a lot of the communities that I see that keep each other alive, that I'm lucky to have been a part of making and being supported by in disabled community, they're not static and they're not perfect. Like, I have networks with people who piss me the fuck off and who, you know, I've sent 20 bucks to people who I'm just like, "I really don't like you, but I can see that you really don't have food," you know, and we're not going to be friends and we're not going to like each other, but I don't want you to die. And that's not...I mean, it's bigger.... There's also people who I'm like, "Okay, you're my ex-abuser. I'm not gonna give you $5. Someone else can give you $5. **Margaret ** 28:42 There's this person who puts a lot of their effort into talking shit on me on the internet and I...they're also broke and have a lot of chronic health issues and I send them money every month. And every now and then I'm like, could this like...could you stop talking shit now? **Leah ** 29:03 I think this is the thing sometimes is like, hey, how about this is the deal, like maybe just say "Thank you," or maybe just talk shit even like 20% less? Because you know, I'm really doing we keep us safe here. I just really want a "thank you." **Margaret ** 29:16 I don't want you to die. Like, I don't want you to starve to death, but I really wish you would be a little bit more open minded to people having different opinions on yours. **Leah ** 29:26 Oh yeah, nuance, right? Yeah, it'd be fucking nice. **Margaret ** 29:29 God forbid. Anyway. **Leah ** 29:31 No, it's good. I guess my TLDR would be to start where you are and start with "what's one thing you can do? What's one person you can reach out to?" And I think, you know, I don't know if this is true for everyone who reaches out to you and it's like, "Well, I don't have anybody," but I think that social media and online connectivity is a real double-edged sword because for some of us who are isolated, it can create both online communities that can sometimes become in-real-life community and, either way, can be sources of some community or support. But I think.... I mean, you know, I'm a Generation X'er and I've just seen social media get more and more chokehold and just turn into fucking the panopticon meets a mall, you know? [Margaret laughs] And I think it's hard because 12 years ago I was part of really early online disabled spaces, which were great because so many people were like, "Well, I'm so isolated in my small town or in my city," or "I can't leave bed, but this is great. I'm meeting with other people and we're building these connections and it's actually more accessible for me to be real about my stuff from like my bed with a heating pad." And now I just think it's so chokeholded that it's hard for us to find each other. So it's much more common for people to be like, "Wow, I'm seeing all these people who have millions of followers and a shiny brand and I just feel like even more of an isolated loser." And then at the same time, I think people are like, "Well, how did people meet each other before this?" And I was like, "Yeah, like, you go to the coffee shop or the donut shop. You put up a flier. You go to the library. You like, I don't know. I mean, I just remember people I met on the food stamps line, you know, when we got there at six in the morning. And not everything's gonna stick, but maybe something sticks. And I also think about like, I'm going back to 13 years ago in early Disability Justice community spaces where--I mean, I think back to [untranslatable] when I went back to Toronto--which, yeah, big city--but I remember I had so many people come to me and be like, "You're..."--because I was starting to be more out about disability, cuz I was like, "I'm in the Bay and there's these wild people who talk about it and they're not all white people." and so I have so many, especially Black and brown disabled femmes be like, "Hi, you don't really know me, but I have fibromyalgia too," or "I have Lupus too. And like, no one I know talks about that. How do you do it?" And I'm specifically thinking about this time that this person I'm no longer in touch with--but we used to be friends--who's like, you know, queer, brown nonbinary person was like, "Let's just have a meet up of other chronically ill femmes of color," which is how we were identifying a time, and it was four of us, four heating pads, a bottle of Advil, and just very tentatively starting to share things about our lives. And I was like, "Yeah, that was four people." But a lot of that hang out then rippled outward. And it was like, I think it's also important to be like, it's scary to build community. Some tools I want to shut out like, so Mia Mingus, who I mentioned before, she has a lot of really great writing on her blog Leaving Evidence and she created this tool a long time ago now--that some people might be familiar with but for folks who aren't--it's, you know, it's her tool that she calls Pod Mapping. And she actually created it as part of a collective she founded called the Bay Area Transformative Justice Collective that was working on doing transformative justice interventions into intimate violence, specifically childhood sexual abuse a lot of the time, and she had this framework that I find really helpful. She's like, "A lot of..." she was talking about in community accountability, transformative justice spaces and she made a really good point where she's like, "Sometimes we talk about like, 'Yeah, bring in the community. Like, everyone has a community.'" And she's like, "Most people don't have a fucking community, let alone one that can interview in childhood sexual abuse." So she created this tool where she's like, "Let's broaden the idea of what community is." Like, maybe it's that one cousin, that you only talk to once a year, but you could call them in a jam, or it's this hotline, or it is like, yeah, they're a weird church, but you really like their food banks. She's like, "You have to really bring in.... Like, start where you are and do the resource mapping we were talking about" I really liked that tool a lot as a place for people who are like, "What's my community?" because I think it's a big word and really being like, "What does that even mean to me?" and like, "What's one place that can start building it?" And I also want to shout out, Rebel Sydney Black, who's a friend of mine who passed this June, at the beginning of the pandemic, he created this tool called Pod Mapping for Mutual Aid that was specifically aimed at disabled folks who were trying to pod map during Covid--and we can provide the link and stuff like that--but I would say that those are two places to start and then I want to get to alternatives to lying down and dying. And then I'll stop. **Margaret ** 34:04 Okay, wait, wait, before we get to that I want to talk more about the building community thing. **Leah ** 34:08 Yeah, please. **Margaret ** 34:09 I think you brought up a lot of really interesting points. And one of the things that I really like about it, you know, talking about having like...you're broadening the idea of what counts as community, which I think is really useful. And one of the things I realized is that a lot of times when I was younger, I was like, "Y'all say 'community' and you just mean the people that you like," right? And that didn't make any sense to me. Community seems like the people where you have a shared interest, whether the shared interest is you live on the same block, or whether the shared interest is an identity, or whether the shared interest is an interest that you're trying to see change, or whatever. It doesn't mean people you like. It's a different thing. Friends are the people I like, right? Well, mostly. I'm just kidding. I love all of you. I mean, there's a lot of people I love that I don't always like. Anyway, so I don't know, and so I think that one of the things that stuck out with me about what you're gonna say and I want to highlight is the idea that--or maybe I'm misreading it--but like "pick issue to work" around seems like a good useful way. Especially if you struggle to just have friends, right? That's not like the thing that you're good at. But maybe there's a thing that you want to work on? Or having that meetup where it's like, oh, all the following people who have the following things in common, let's meet up and talk about it. Or honestly, activism is a really good way to meet people and work closely with people about things. And it doesn't necessarily have to mean these are now your friends. But they can be people where you rely on each other. And that doesn't have to be the same. I think about it a lot because I live in a fairly isolated and rural environment where there's not a lot of people around me who are culturally.... Whatever, there's not a lot of out, queer people where I live. There's not a lot of punks. And I'm like, that's okay. I talk to my actual neighbors instead. I mean, some of them, not all of them, but most of them, you know, they're who I would rely on in a crisis, because they're right there. It doesn't mean that we have the same ideas about a lot of stuff, you know? But we have similar ideas, like, "Let's not die," right? And so that's enough sometimes. Anyway, I just wanted to.... **Leah ** 36:12 No, I really appreciate it. And I mean that makes me kind of think about, when you were talking, I was like, yeah, you know, there's friends, there's communities, and then there's survival networks, which can include contacts, right? Because I just think about what would I do right now, if some should happened? And I was like, I've got long distance kin and long term friendships and relationships ofvarious kinds and I also have--because I moved to where I live, which is like semi-rural, but definitely more rural than where I've lived before--and I'm just like, yeah, I have a small number of friends. But there's like people who I know who I can...who are neighbors who like, maybe we don't know a shit ton about each other but I could be like, "Hey, this thing?" or "Hey, do you have water?" or, "Hey, let's do this." I think it's a lot about thinking about what are your goals? Is your goal intimacy? Is your goal survival? Is your goal friendship? Because you need different levels of trust and commonality depending on those things, right? I also think, and this is the thing too, I think something.... I think a lot of times because I've had people be like, "Well, I don't have community," also, I've heard that. And I think that a lot of times the context, I hear it in is people being like, "Well, I have care needs, but I don't have any community." So then there's also the really big thorny question of "need" and like being cared for is actually very complicated. It's very risky. It's very vulnerable. It's not safe a lot of the time. It may feel a lot easier to just be like, "I don't have any fucking needs." And so there's a lot, I will just say that there's a lot of unpacking that needs to do around like, "What would I need to be cared for? What are my lower risk needs that I need help with? What are my higher risk needs?" right? Like, there's people who I can.... There's some needs I have where I'm like, I don't need to trust you super, super deep politically or on an intimate level to let you do that. There are certain needs where I'm like, that's only going to be people where we've really built a lot of fucking trust because if this goes sideways you could really stuck with me. Right? And I think that when you're starting from nowhere, I think often where people get stuck is like, "Where I am feels like I have nobody and nothing. And I want to get to like the thing I've read about in your topic science fiction, where you know, it's Star Hawk and everybody loves each other. And how the fuck do I get from A to B." And I think the solution is like, yeah, you're not gonna get to fucking "Fifth Sacred Thing" right away--and that book is complicated. **Margaret ** 38:29 Yeah, It was very influential on my early.... **Leah ** 38:31 Oh yeah, when I was 18, I just wanted to fucking move there. And now I'm like, "Oh God, this is embarrassing. There's some shit in here." I'm like, "Wow, everybody's mixed race, but everyone's Black parents are dead." Wow. Cool. Nobody really thinks about race. I'm like, I'm gonna throw up. And like, you know, BDSM is just violent....Okay, sorry. We're not going to get into that. **Margaret ** 38:47 Oh my God, I don't remember that part. **Leah ** 38:49 Oh, yeah. No, where it's so violent. Like, "We're just loving." And I wrote a really no passion paper for school, because we actually had to read it in a college class I was in, and I was like, "Why are they not into leather sexuality?" And my professor was like, "Okay, 18 year old..." but yeah. **Margaret ** 39:04 I mean, legit. You 18 year old self had a legitimate critique. **Margaret ** 39:08 Yeah. **Leah ** 39:08 Yeah, no, there's a lot there. But, um, but jumping back, I guess it's just like, you know.... And I think this feels like disabled wisdom too, it's like, what can you do with the spoons or the capacity you have? Like, what's one move you can make that small? And then can you build on that? Yeah, but can I talk about alternatives to lying down and dying? **Leah ** 39:28 Yeah. Well, I think...I mean, this is the thing, is like, I'm a survivalist, but I'm not like anti-civilization in the ways that some people are. Like, I want meds, you know? And I think that's something that other crips I know talk about a lot, which is like, you know, we're really against this way that some people, including some people who would like align themselves with like Healing Justice who are like "We're like, oh, yeah, we just have to go back before colonialism and capitalism, and just everyone lived on herbs and it was great." and I was like, "Nah, bitch, I need surgery and meds." Like I want it all. Like, I love non-Western pre-colonial traditional healing. Absolutely. And I've had friends who died because they didn't get their surgeries on time. Like my friend LL died because nobody would give him a fucking kidney because they said he was too fat. And I'm just like, my good future involves.... I mean, and he's one of millions right? So like, my good future involves that we have surgical suites. And I'm just like, you know, honestly, also, a lot of times that worldview just seems so white to me, because I'm just like, listen, a lot of like, global south places figure out how to have field hospitals, right, in really dire and low-resource situations. So I'm sorry.... **Margaret ** 40:40 I mean, only Europoe's ever figured out surgery. No one else has done surgery until Europe showed up. [Said sarcastically implying the opposite] **Leah ** 40:45 Yeah, not fucking ever. [Also said sarcastically] **Margaret ** 40:46 Said the people who are like, "bite down stick and I'll saw your arm off." **Leah ** 40:49 Yeah, so I mean, I guess one thing I would just say is like, I would say that and I would say like, you know, really...I want to like lift up and encourage people to look at--and they can be hard to find--but look at cultures, look at organizing initiatives where people were like, "We can have our own ambulance, we can have our own like..." And when that's not there, to think about what it would mean to have medical care after the apocalypse, right? What would it mean to make hormones, make drugs, synthesize chemicals, and it's not impossible. I think that we're still in the in between of like, okay, we gotta figure out how to do that. But, um, you know, I'm thinking about, Ejeris Dixon, who's my friend and comrade, and, you know, we co-edited "Beyond Survival" together, which is a book we wrote that came out right at the beginning of the pandemic about stories and strategies from how people are actually trying to create safety without the cops. Ejeris always talks about how they were like, "Yeah, like, in Louisiana, you know, in the South, you know, like in the 50s, and 60s, and before I believe, there were all kinds of Black run ambulance and 911 services," because regular 911 wouldn't come to Black communities. Right? And they, I mean, something that I've heard them say a lot over the years is like, "We don't have the people's ambulance yet. But we could." And then it makes me also jump to some friends of mine who were in Seattle who were really active as street medic crew during the rebellions after George George Floyd was murdered by the police in, you know, 2020 in the summer, and specifically in, as some people remember, Seattle managed to have 16 square blocks break off from the city for a while, CHOP, Capitol Hill Organized Front. And so what people don't know is that the cops were like, "Okay, fuck you. We're not going to...If there's any 911 ambulance calls, we're not going to fucking let anyone go in there." So the street medic crew had to deal with a lot of really intense situations. And then after that, like a lot of us folks, like some folks were already nurses or EMTs and a lot of folks who were involved went to nursing school or EMT school and we're like--and I don't know where it's at now--but they were like, "We want to create,"--because right now in Seattle, there's, if somebody is having a crisis on the street, like a medical or a mental health crisis or an altered state crisis, there's no non-911 crisis response that you can call. There's either you go down the stairs to talk to somebody or there's the cops, right. And they were like, "We can get a van. We can get medical equipment from eBay." And you know, I don't know where they're at with that, but they were really organizing around like, "Yeah, we could get a defibrillator. We could get oxygen. We could get blood pressure cuffs. We could get fucking..." you know? And I think that that shit gets complicated in terms of insurance and regulation and the State and the medical industrial complex, but I want us to keep thinking about that. I also, and then I'll wrap up because we have other questions to get to, but it also makes me think about, I mean, I don't know if folks are familiar with Gretchen Felker Martin's amazing science fiction book "Manhunt," right, which is about.... **Margaret ** 43:50 I haven't read it yet. **Leah ** 43:52 It's so fucking good. Okay, so I won't give it away. But just for people who don't know, I'd say it's the one kind of gender sci-fi book where "Oh, a virus, you know, affects people with certain chromosomes or certain that dih-dah-dug that's not TERFy because it's a book that, you know, she's trans, and it's a book that centers trans women and nonbinary communities and there's like one or two trans masculine characters. But the two main trans femme, like trans women characters in the book, they're like, they have to, they're like, "Yeah, like, we're going on raids to get, you know, hormones, and, you know, different, like chemical drugs we need. And we're also figuring out how to synthesize them from herbs and different substances." And it's not easy. It's a struggle. But there are organized communities of trans women and allies that are fighting to do it. And I'm just like, yeah, and I mean, it's an amazingly well written book, and she's incredible, and I fucking loved it. And it's just beautifully written and really just--sorry, I won't gush too much but go read it, it's incredible--I just really also appreciated it because she was like, "Yeah, of course we're gonna get our hormones after the end of the world. Like of course it's possible." And I will also.... I have some criticisms of the ableism in it, but M.E. O'Brien and--fuck I'm forgetting the second author's name, but every you know, "Everything For Everyone," that book. I appreciated how in the good future society, they're like, "Our priority is making sure that insulin and chemical drugs and hormones are accessible and free to everybody." And I was like, I guess I would just push people towards there are ways of imagining the future where we can defeat capitalism but still have medical care of all kinds. We can have Reiki and acupuncture and we can also hormone surgery and transplants. And we might be doing it better because it's not controlled by fucking corporations and assholes. Sorry, that's my soapbox. Um, okay. I will say in terms of people being like, "That's really nice. But what about me?" I would be like, you know, I mean, right now in the war on trans America, there are so many people already who are like, "Yeah, I'm stockpiling meds. I like doing meds trading." I would say it goes back to what we started about, which is like, "Okay, what are your needs? What are the things that you're worried will not be there if the world ends?" Right? And we also need to recognize that the world's already ending and it's ended for some of us a bunch of times already. But I would be like, make that list and then really be like, "Alright, how do I get it?" You know, and if I can't specifically get it, are there like backups that I can get? And it may be stuff that you can research on your own. It also might be stuff where it's like, "Okay, are there trans [untranslatable], disability justice organizations, nationally, globally, locally, that you can hit up and be like, "What are folks thoughts about this? Are there ways that we can resource share?" Because I think it's about pills. I think it's also about durable medical equipment. So in terms of stuff that requires power to live, I think about generators and I think about generator shares. And I think about things like...there's a story when Hurricane Sandy hit New York 10 years ago, there were a whole bunch of us where...there's a guy Nick who's in community who, physically disabled guy, 13th floor, accessible apartment, you know, the lights went out, you know, really dependent on electricity to change out the batteries on his ventilator. There's a whole crew of disabled folks, like people walked up and down those fucking stairs every eight hours to take the spent batteries, figured out, "Hey, you know, what still has power, the fucking fire department." People were walking down recharging the batteries every eight hours. And it was allies, it was ambulatory, it was disabled people who could walk. It was fucking hard. But people were like, we're not.... Nick and his friends were like, "We're not just going to die. We're needed." So I wanna shoutout that and just for possibility modeling, I really want to, one other place I want to shout out, is an org that used to be known as Portlight but was now known as the Center for Inclusive Disaster Strategies, which is a disabled-led organization that is about like, yeah, when there's a climate or other disaster, they figure out ways of getting like accessible fucking evacuation methods to places because they know...we know, there's millions of examples of people who are just left to die in nursing homes or like, "Oops, the bus doesn't have a ramp," or, you know, I really want to name that during Katrina, some people might know about, you know, the situation with the nursing home that was there were a lot of folks who were wheelchair users or had high care needs were fucking killed by medical staff because the medical staff were like, "We're gonna actually euthanize these folks without their knowledge or consent." [Margaret exclaims] Yeah, no, there was actually a movie on HBO about it I think semi recently. Because "that's easier than figuring out how to fucking get people in the medivac ," right? Yeah, and so the Partnership for Inclusive Disaster Strategies, I'm still getting to know them, but I have friends who are involved and they're like, "Yeah, we're aware this is an issue." So yeah, let's work with the fucking Cajun fucking Navy to like make sure that you can get folks with different bodies onto evac boats. Like let's figure out what disabled survival looks like. And I will just say, and this is the last thing I swear, for me, I mean, we all know water is important. Like, I can't lift 54 pounds. Guess what? So can't--which is, you know, a seven gallon right, like a five or seven gallon whatever--I'm just like, yeah, so I can actually have smaller jugs of water that I can lift. So yeah, I have a bug out plan, but I also have a real Shelter in Place plan because I'm just like, yeah, my apartment's accessible for me. So yeah, I got a shit ton of water right here and I'll be good for a while. And I also have a plan B for.... Okay, there's...I've got my filtration equipment, so when that runs out, I'm close to some water sources where I can go and I can filter that shit. And that's me thinking about what works for my body. Think about what works for yours and then plan out from that. Okay, I'll really stop talking now. **Margaret ** 49:44 No, no, but there's so much there. Even just like to go to the weight of water, right? The thing that I ran across that I'm like--I'm reasonably able-bodied and such like that, right--but I live alone and so obviously there's this specific thing where like.... Well, one, I mean, abledness is always a temporary position.... **Leah ** 50:04 Yeah, you're going to get disabled, you're gonna get sick and disabled. **Margaret ** 50:07 Like it literally happens to--unless you, I don't know, die very quickly, very suddenly, probably violently, you're gonna go through a period of disability in your life, you know? And so my argument is that machismo is anti-prepping. And one of the ways that I would say is that like, there's now, I think.... Okay, so cement bags, they come in 50 pound bags traditionally, right? But now there's more and more, I think, there seems to be more and more 30 pound bags, right? And I used to be like, "Oh, whatever, I can lift a 50 pound bag. So I should carry the 50 pound bag." And then I'm like, well, it was not a helpful way to look at it. It is far better for me to just have 30 pound bags of cement because they're easier to carry and I'll get tired less. And I, you know, at the time that I was pouring these bags, I lived up a hill about probably the equivalent of a seven storey walk up to this cabin that I was building, right. And so I had to carry each and every one. It was way nicer that I carry 30 pound bags. And if your preparedness doesn't include the fact that your level of ability will change in different situations, then it's not very good preparedness. And and so like, I don't know, I mean, like most of my water jugs are four or five gallon jugs. I use jerry cans. I think most of them are five gallon. And I hate the six gallon ones and the seven gallon ones. They're just heavy and annoying. And it's like I can give lift them but there's no reason why I should. Unless I'm specifically working on lifting weights. And then the other thing that you talked about that I really think about a lot, you know, is this idea, of does your version of disaster mean that every doctor dies? Or like, does your version of disaster mean everyone who's ever made insulin dies? Like, it's possible. Sure, you could have 90...if almost everyone on Earth dies, then everything is a little different. But most disasters don't actually..... Most disasters destroy ways of living and large numbers of people, but not the majority of people write. Most people survive most disasters. And, people are like, "Well, our organizational systems are what produce insulin," and like, no, people produce insulin and they use organizational systems with which to do it. But different organizational systems can also produce insulin. Like different organizational systems can use the same infrastructure sometimes and make the things that we rely on. And it came up with this like whole thing where people on the internet were like, "Ah, if you're an anarchist, you hate disabled people because in anarchy, you can't have insulin," **Leah ** 50:28 That's gross. **Margaret ** 52:40 It is a complete misunderstanding of anarchism. It is not a lack of organization, it is a different type of organization. **Leah ** 52:46 Anarchy is responsibility. **Margaret ** 52:48 Yes, totally. **Leah ** 52:50 Sorry, sorry. **Margaret ** 52:52 That's why people don't like it. People are afraid of it because they actually have to.... It's the accepting no one is coming to save us except us. You know? No, I love that way of framing and it also annoys anarchists when you tell them this too. **Leah ** 53:07 Okay, well, I mean, you know, so I worked at Modern Times books, which was, you know, is no longer around, but was a long time anarchists and anti authoritarian radical bookstore in the Bay. And we had the only public toilet in all of the Mission because everybody else was like, "No, you gotta buy something." and in my interview, they're like, "How will you make the store better?" And I was like, "I will make the bathroom not smell horrible." Because, you know, it was just like a bust, everyone was pissing in there. And so I taped up a sign that said "Anarchy is responsibility. If you spray the fucking toilet with urine, please wipe it up. Together we can have a toilet." And somebody called me out and was like, "That's capitalist." And I was like, "No, just wipe your piss up or we're not gonna make the revolution. Like, come on." But yeah, they got pissed at me about that. [Both laugh] But yeah, I mean, I think that's a really good point. And it's like, you know, I mean, I think that it does point to, you know, I think a structural problem in a lot of our movements, which is like, yeah, we don't we need more people who know some basics of chemistry and can synthesize stuff. Like, that's, you know, we need more people who've gone to some kind of science or engineering school who can figure out how sewage works and how you synthesize insulin and how you synthesize hormones and like, basic surgery. And I think there's a lot of hopefulness because I--maybe it's just the folks I hang out with--but I have a fair number of friends who are like, "Yeah, I'm gonna be a nurse practitioner. I can give you an abortion. I can sew up your wound. I can help you figure out this thing." And I'd love for there to be more of us who can go to PA school or

Our featured guest for Disability Pride Month is Caz Killjoy. Caz is a Disability and Sexuality Freelance Educator and Consultant. Caz (pronouns: they/them/theirs) is currently on medical sabbatical. Prior to that sabbatical, they spent their life focusing on the things that make most people uncomfortable: accessibility; sex and kink; pain, disability, and illness; death and poverty; advocacy; and digital harm reduction. Caz is a white, genderqueer, queer person who practices non-monogamy as a relationship anarchist. Caz is also an abolitionist, an anarchist, an atheist, and an anti-Zionist; a lumpen-precariat; a formerly unhoused person; a former sex worker; a proud GED recipient; a writer and storyteller and blogger; and they are multiply disabled; Caz's disabilities are the least interesting thing about them. In Slavic, “Caz” means “the famous destroyer of peace,” but “Caz” is also an abbreviation of their first name, hence the name “Caz Killjoy” – which started out as a joke and now they're stuck with it. To learn more or get in touch, find Caz at http://ConnectWithCaz.com .   Episode Transcript - https://docs.google.com/document/d/1ILqV07ej2zF4iGKdl_NdGFjJ_1em4A6f/edit?usp=sharing&ouid=117188677819474678160&rtpof=true&sd=true   Links How many disabled people are there? by Peter Torres Fremlin at Disability Debrief Resources on Ableism How do these representations of disability in music make you feel? Wheelchair Sports Camp: “Yess I'm A Mess” Ellie Goldstein (lip syncing): “The Disability Serviceland Song” Delta Spirit: “What's Done is Done” Book Skin, Tooth, and Bone: The Basis of Movement is Our People (2019) by Sins Invalid. Not only did they write the book about disability justice, they birthed the concept. Articles No Roles for BIPOC Disabled Actors in Hollywood: I'm A Black, Disabled Actor. This Is How I'm Making My Place In Hollywood. by Regina F. Graham at refinery29. This article interviews three disabled women of color who are actors about their struggle to find roles in Hollywood due to ableism and racism. Violence in Language: Circling Back to Linguistic Ableism by Lydia X.Z. Brown. This blog post covers ableism in our language and includes a link to a glossary of ableist phrases. Short Film (streaming for free) Jeremy the Dud, available in full for free on YouTube (2017): A great cast of several actually disabled actors, including Chloé Hayden who went on to play Quinni in Heartbreak High. The short film is a comedy set in a world where everyone has a disability, and those that don't are treated with the same prejudice, stigma, and condescending attitudes people with disabilities face in our own society.  Social Media Imani Barbarin is a Black cis woman who has cerebral palsy – and has the internet's hottest takes on ableism and other disability-related issues. Check her out on TikTok as @crutches_and_spice. TV Show (subscription required) Queer as Folk, available on Peacock (2022): Stars actor Ryan O'Connell as Julian Beaumont. Ryan is a white gay cis man who has cerebral palsy. Also features biracial actor and dancer Eric Graise in a recurring role as Marvin. Eric is a bilateral amputee who uses a wheelchair in the show (he does not use a wheelchair outside of the show). Guest stars actor, model, and activist Nyle DiMarco, who is a white Deaf cis gay man, as Leo. Amazing portrayals of ableism, including internalized ableism, particularly as they relate to sex and relationships. Resources on Archiving Awkward Archives: Ethnographic Drafts for a Modular Curriculum (2020) by Margareta von Oswold and Jonas Tinus. (free PDF book.) Gracen Brilmyer's Disability Archives Lab. Preserving Disability: Disability and the Archival Profession (expected late Fall 2023; book) published by Litwin Books. Society of American Archivists AMRT/RMRT Working Group on Accessibility's Guidelines for Accessible Archives for People with Disabilities.

This epsiode of Finding Refuge is pure fire! I had the honor and privilege of interviewing Cara Page and Erica Woodland, co-editors of Healing Justice Lineages: Dreaming at the Crossroads of Liberation. Read more below about the themes we weaved together during the interview and about Cara and Erica. Cara Page is a Black Queer Feminist cultural memory worker & organizer. For the past 30+ years, she has organized with LGBTQI+/Black, Indigenous & People of Color liberation movements in the US & Global South at the intersections of racial, gender & economic justice, healing justice and transformative justice. She is founder of Changing Frequencies, an abolitionist organizing project that designs cultural memory work to disrupt harms and violence from the Medical Industrial Complex (MIC). She is also co-founder of the Healing Histories Project; a network of abolitionist healers/health practitioners, community organizers, researchers/historians & cultural workers building solidarity to interrupt the medical industrial complex and harmful systems of care. We generate change through research, action and building collaborative strategies & stories with BIPOC-led communities, institutions and movements organizing for dignified collective care.As one of the architects of the healing justice political strategy, envisioned by many in the South and deeply rooted in Black Feminist traditions and Southern Black Radical Traditions, she is co-founder and core leadership team member of the Kindred Southern Healing Justice Collective. She was the Executive Director of the Audre Lorde Project in New York City and is a former recipient of the OSF Soros Equality Fellowship (2019-2020) and ‘Activist in Residence' at the Barnard Center for Research on Women. She was also chosen as Yerba Buena Cultural Center's ‘YBCA100'in 2020. Cara has organized and co-created with many political and cultural institutions & organizations nationally & internationally including Center for Documentary Studies, Third World Newsreel, Sins Invalid, Southerners on New Ground (SONG), Project South, INCITE! Women & Trans People of Color Against Violence, Bettys Daughter Arts Collaborative, and most recently the EqualHealth Campaign Against Racism, the National Queer & Trans Therapist of Color Network, Disability Project of Transgender Law Center, Astraea Lesbians for Justice Foundation and the Anti-Eugenics Project; toward building & resourcing racial, gender & healing justice strategies for our liberation, collective care & safety. Her forthcoming book, co-edited by Erica Woodland, entitled “Healing Justice Lineages: Dreaming at the Crossroads of Liberation, Collective Care & Safety” (North Atlantic Books) will be out in February 2023.Erica Woodland, LCSW is a Black queer, trans masculine/genderqueer facilitator, consultant, psychotherapist and healing justice practitioner who was born, raised, and is currently based in Baltimore, MD. He has worked at the intersections of movements for racial, gender, economic, trans and queer justice and liberation for more than 20 years. He has extensive experience working with young people, Black, Indigenous and People of Color, LGBTQ people, and people with disabilities across the country, from Baltimore to the San Francisco Bay Area. Erica is the Founding Director of the National Queer and Trans Therapists of Color Network (NQTTCN), a healing justice organization that actively works to transform mental health for Queer and Trans Black, Indigenous and People of Color. Under his leadership, NQTTCN has trained and mobilized hundreds of mental health practitioners committed to intervening on the legacy of harm and violence of the medical industrial complex while building liberatory models of care rooted in abolition. Erica came into liberation and healing work in the early 2000s by way of harm reduction and abolitionist organizing with survivors of state, community and interpersonal violence. Working at the nexus of collective care and political liberation has been central to his practice as a clinician, facilitator, and healer. Erica has done extensive work in carceral environments including prisons, jails, and psychiatric detention centers as well as in grassroots community based organizations, giving him a wide range of experience to draw from in his liberation work. From 2012-2016, Erica served as the Field Building Director for the Brown Boi Project, a national gender justice organization, where he lead movement building work to transform masculinity and confront sexism, misogyny, and queer/transphobia.Erica is co-editor of Healing Justice Lineages: Dreaming at the Crossroads of Liberation, Collective Care and Safety, with Cara Page (North Atlantic Books, 2023). In 2017, he was awarded the Ford Public Voices Fellowship and the Robert Wood Johnson Foundation Culture of Health Leaders Fellowship. Erica's op-eds have been featured in Role Reboot, Yoga International and Truthout and his healing justice work has also been highlighted in Time magazine, CNN, Healthline, Complex, and the New York Times. He is also a principal author of Freeing Ourselves: A Guide to Health and Self Love for Brown Bois (Brown Boi Project, 2011).In this episode, we discuss:The Need for Healing Back, Now and Into the FutureThe Ecosystem of Healing Justice Work and PracticeAccountabilityWhat we Need to Listen to NowAncestorsHonoring Our LineagesRelationship to PlaceDestinyHarriet TubmanCollective CareMovement Work The Disorienting Nature of This TimeThe Process of Being Led to Write a BookCollective LiberationDreamingA Collective Dream for Our Future And More!You can connect with Cara on her website and Erica on his website.Purchase their book, Healing Justice Lineages, here.Podcast music by Charles Kurtz+ Read transcript

I think you are really going to enjoy this one. My reading over the summer holidays was Shayda Kafai's brilliant book ‘Crip Kinship: The Disability Justice & Art Activism of Sins Invalid' (which I notice in the podcast I call 'Crip Wisdom' - sorry!), and as soon as I finished it I knew I had to ask Shayda to come onto the podcast to discuss her ideas. I asked her who her dream fellow guest would be, and she suggested Zena Sharman, author of The Care We Dream Of: Liberatory and Transformative Approaches to LGBTQ+ Health. And so this episode was born. And what a delightful, deep and amazing discussion we had. You're going to love it. Do let me know what you think, I hope this episode provokes a lot of discussion and reflection.   Please consider supporting the podcast by visiting www.patreon.com/fromwhatiftowhatnext and becoming a patron.

Allison C. Carey is a Professor of Sociology and Chair of the Department of Sociology and Anthropology at Shippensburg University and director of the Master's Program in Organizational Development and Leadership. She co-authored Allies and Obstacles: Disability Activism and Parents of Children with Disabilities (Temple University Press, 2020), and authored Disability and the Sociological Imagination (Sage, 2022) and On the Margins of Citizenship: Intellectual Disability and Civil Rights in Twentieth Century America. She is co-series editor of Research in Social Science and Disability and has co-edited several volumes for that series, as well as co-editing Disability Incarcerated: Disability and Imprisonment in the United States and Canada. In 2021, she was awarded the Outstanding Career in the Sociology of Disability award from the Disability and Society section of American Sociological Association. She can be reached at accare@ship.edu. Pamela Block's Bio & Contact information Richard K. Scotch is Professor of Sociology and Public Policy at the University of Texas at Dallas. His teaching includes courses on medical sociology, social stratification, and social and health policy, while his research focuses on social policy and social movements related to disability, health, and education. He currently serves as Program Head of the Sociology and Public Health Program and the Criminology and Criminal Justice Program in the School of Economic, Political, and Policy Sciences. Dr. Scotch's most recent book, Allies and Obstacles: Disability Activism and Parents of Children with Disabilities was coauthored with Allison Carey and Pam Block and published by Temple University Press. In this episode we discuss the history of parent-led disability advocacy organizations and their relationships to and interactions with organizations led by people with disabilities. We also discussed how this history relates to current mindsets about disability, collaborative efforts between parent organizations and disabled activists, as well as tensions among these groups. If you are an educator, this will give you insight into why parents might have vastly different perspectives. If you are a parent, not only will you feel understood, but also empowered with new information. Links or Resources Mentioned Allies and Obstacles: Disability Activism and Parents of Children with Disabilities - Note: Allies and Obstacles won an Outstanding Publication Award from the Disability & Society section of the American Sociological Association and the Scholarly Achievement Award from the North Central Sociological Society. Black Disability Politics by Sami Schalk Crip Kinship: The Disability Justice & Art Activism of Sins Invalid by Shayda Kafai Just Care: The Messy Entanglements of Disability, Dependence, and Desire by Akemi Nishida United for Communication Choice Stay Connected with Diana Diana's Website Free Resource - 5 Keys to Going Beyond Awareness Beyond Awareness: Bringing Disability into Diversity in K-12 Schools & Communities - Diana's Book Ed Roberts: Champion of Disability Rights - Diana's Children's Book "Beyond Awareness" Digital Course Diana's TEDx Talk Beyond Awareness Facebook Page Diana on Instagram Beyond Awareness Tote Bag Beyond Awareness Pullover Hoodie Beyond Awareness Raglan Baseball T-Shirt Beyond Awareness Journal/Notebook Diana's Teachers Pay Teachers Store - Disability as Diversity Credits and Image Description Intro and outro music courtesy of Emmanuel Castro. Podcast cover photo by Rachel Schlesinger Photography. Podcast cover image description: Black and white photograph of Diana, a Spanish-American woman with long, wavy, brown hair. She is wearing a flowy, white blouse and smiles at camera as she leans against wooden building. Photo is colorfully framed with gold and orange rays of seeming sunshine on top half, and with solid sage green color on bottom half. Text reads "Beyond Awareness: Disability Awareness That Matters, Diana Pastora Carson, M.Ed."

Hi, Y'all! As I've written about before, school board elections are important. And while we cannot endorse candidates for any public office because we are a nonpartisan organization, there is a candidate running for election in Minnesota that you'll want to know about. Sonya Emerick My name is Sonya Emrick. I am a parent of two disabled kids and I am a disability justice activist, And I'm running for Minneapolis public school board. Tim Villegas So, what inspired you to run for school board?  Sonya Emerick Well, my now six-year-old child has been receiving early childhood special education since he was two through my district in Minneapolis. And we had a really great birth to three educator. When we were doing evaluations for his first IEP one of the tools used was to measure like social, emotional resilience.  I went to give it back to her and I said, you take this, and you can use it but it's not going to give you any information about my kid, my kid is autistic. And this just tells you how far away he from a neurotypical kid And that sparked a conversation where, you know, as an autistic person, raising autistic kids I see developmental trajectories differently. I think that we need disabled people at the table to inform our perspectives and help us develop our solutions to some really big problems. And I think it's needed in my district. And I'm hoping I get the opportunity to provide that service here.  Tim Villegas So as an autistic person and a parent of an autistic child, how do you think that experience would help inform you being on the school board and representing or supporting all students? Sonya Emerick As I have gotten, deeper and deeper into disability justice work and being introduced to the work of people like Talila Lewis and the Sins Invalid collective and Imani Barbarin and Lydia X. Z. Brown, people who are doing such important work at the intersection of race and disability. I have learned so much about how connected racism ableism are. I'm in Minneapolis. And my city, it may not be on the news anymore, but my city is still. Very much reeling and hurting and trying to heal from George Floyd's murder. And it has impacted our entire school district. Our kids are quite traumatized. And when we think about the kids in my district, which is about two-thirds kids of color, about 20% receiving special education services,  I think inclusion touches all of that, right? Like I've said before, inclusion is not, can the wheelchair fit to the door? Inclusion is, are we meaningfully creating places of belonging for every student? Are we making sure the onus to belong in a learning community is never on the student but that we're responsible for creating those places? Tim Villegas So what would be some of your goals if you were elected on the school board? Sonya Emerick I think that every piece of my platform really iterates back to making those spaces for belonging and the specific strategies are very, because I think it takes a lot of different strategies. So, for instance, in my district, we have. Approximately five white students to every one white educator and 55 black students to one black educator. So, part of my platform is, recruiting and retaining educators of color.  Literacy is a big part of my framework. My district did just complete a three year roll out of comprehensive literacy instruction, which is really exciting for me because that's a framework that works so well for students with intellectual and developmental disabilities, who historically have not been provided rigorous evidence-based literacy instruction, I believe very much that we need to expand our restorative justice practices that we use to help keep kids who are struggling in their learning communities supported as opposed to using exclusionary discipline. What would it be like if we taught our kids that every single person in their classroom had to be there in order for us to be us and to learn together in the unique way that we've cultivated. Tim Villegas So, what do you think is the biggest barrier to inclusion in your school district?  Sonya Emerick Focus on behavioral compliance.  Tim Villegas Tell me more about that.  Sonya Emerick Yeah. I think that we have behavior norms that are Eurocentric or informed by whiteness and that are ableist. I think that there is no way that every child can be included if they have to be held to the expectation that they will perform behavior in a way that's not culturally responsive or culturally sustaining I think it's really traumatic and damaging. Tim Villegas In your view, what would be the solution or ease that barrier? Sonya Emerick Why do we say that we enforce behavior compliance? Because for classroom management, because we need safety first and foremost, for all students and all educational staff, and we need spaces that are conducive to learning happening. I think that there's a lot of ways we can accomplish those goals without needing to rely heavily on behavioral compliance. Better instruction, when I talk about literacy and more evidence-based literacy instruction based in the science of reading, creating agreements with students in their classrooms about what they want their classroom culture to look like is a wonderful tool, right? Using those restorative practices towards liberation, understanding that students are going to look a lot of different ways. And it's not a bad thing.  I don't think that students who are engaged and who feel confident about their ability to learn the material and who really feel accepted and a sense of belonging generally have a lot of behavioral issues. I don't think you need to use a lot of compliance strategies under those circumstances.  Tim Villegas What if someone would say, well, you know, there needs to be consequences for behavior. If there's a small group of students being disruptive or refusing to do work there needs to be consequences.  How would you respond to that?  Sonya Emerick Honestly, I would say. Tell me more about why you think that. And I would want to sort of dig in with some curiosity to hear, you know, what, where that is coming from in that, in that adult. Right. And then if I felt like I could be effective at, at helping a frame shift with that person, I would wanna move the conversation towards what do you think those kids might be needing that they're not getting.  I think it's a practice though, right? We can't do an hour of professional development with educators and help them make that shift. Right. That's something that requires practice over a long term and requires support so I think that like one thing that we're talking about in some of the work that, that I'm doing to try to reduce discipline disparities is do teachers need more in person support available throughout their school days for co-regulation with other. What would that look like? What would it look like if you're a teacher and you can feel yourself getting stressed, to be able to have a five-minute check in with adult who's there to help you co provide support for you. And then could you bring that back to your kids? Right?Tim Villegas Sonya, this is the first time I've ever heard that. That's a great idea. I think that. It can naturally happen, but to be purposeful about it. I think that's a great idea.  Anything else before I let you go, that you wanted to share? Sonya Emerick I think that kids learn when they feel safe. And I think that the kids in my district aren't feeling safe right now. If inclusion is happening, then felt safety is happening, right. If there's not a sense of felt safety, is it really inclusion? Are we really getting everyone what they need? For information about the other candidates running for the Minneapolis school board, here is a link to a Minneapolis Public Schools School Board Voter Guide. The primary election takes place on Tuesday, August 9, 2022. As always, if you ever have questions or comments email me at tvillegas@mcie.org or go to mcie.org to learn more about how we can partner with you and your school or district. Thanks for your time, everyone. I'll be back in a couple of weeks with another edition of The Weeklyish.  Have a great week! ICYMI 5 Ways to Get Inclusion Started at Your School Mazey Eddings | Neurodiverse Representation in Books Why I Created My Podcast, Exceeding Expectations Liz Weintraub & Kenneth Kelty | Using Content Creation for Disability Advocacy Around the Web Sexuality and Parenting Supports for People with IDD Massachusetts First in the Nation to Open Colleges to Students with IDD and Autism Mother shares journey advocating for inclusive education Why Vice President Kamala Harris mentioned her blue suit at a disability rights meeting What I'm Reading Miracle and Wonder: Conversations with Paul Simon | Malcolm Gladwell | Official Trailer Via Pushkin.fm. What I'm Watching Severance — Official Trailer | Apple TV+ What's in my Pod Feed Margy's dad was a hoarder (What Was That Like)  “I Was A Stranger and You Welcomed Me” (Revisionist History)  “We are a technology-based school” (Inclusive Schools Spotlight Series)  “This Isn't Just About Abortion”: What the End of Roe Means to You (Death, Sex & Money)   What I'm Listening To The Pointer Sisters - Neutron Dance What's in my Timeline From Crip Theory Bot   From the Wayback Machine Remote Work Brings More Than Silver Linings Just Because Vin Scully was the voice of baseball. Hear some of his greatest calls.  ... The Weeklyish is written, edited, and sound designed by Tim Villegas and is a production of MCIE. Our intro stinger is by Miles Kredich. And our outro is by REDProductions. For information about inclusive education visit mcie.org and check out our flagship podcast, Think Inclusive, on your favorite podcast app. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit weeklyish.substack.com

Hello and welcome to Episode Fifty-One of Page Turn: the Largo Public Library Podcast, the very last episode. I'm your host, Hannah! If you enjoy the podcast subscribe, tell a friend, or write us a review! The English Language Transcript can be found below But as always we start with Reader's Advisory! Today's Reader's Advisory is a little different that usual. I decided, selfishly, to share some of my favorite books this year and talk about why I liked them. Just share a bit about my personal reading preferences and how all these, seemingly different titles, all caught my eye and my love. The titles I decided to share about are Unbias: Addressing Unconscious Bias at Work by Stacey A. Gordon, Crip Kinship: the Disability Justice & Art Activism of Sins Invalid by Shayda Kafai, link to their performances can be found here, The Forgotten Dead by Jordan L. Hawk, Creepy Cat by Cotton Valent, and Water I Won't Touch by Kayleb Rae Candrilli. Happy Reading Everyone Today's Library Tidbit is all about our new butterfly garden! The idea to change our courtyard from its previous version to the butterfly garden came from an article in the March/April issue of American Libraries magazine. This article, titled, “Where Monarchs Reign” by Emily Udell, describes how the Kokomo-Howard Public Library created their butterfly garden, how that garden inspired other gardens in the area, and also about the importance of butterflies and butterfly gardens to the ecosystem. Butterflies, and other pollinators, are deeply important to our planet and are some of the first to suffer from climate change and human caused destruction of habitat. For too long humans ignored native flora and fauna not understanding why it was important. In recent years we have seen a growing understanding and push for replanting with native plants to encourage native wildlife back into the ecosystems. Some minor inconveniences and costs is worth it to have a habitable planet for our descendants. Casey, the Library Director, read this article and was inspired to change our courtyard garden into a butterfly garden! It was also important to her to make sure that our butterfly garden was a certified butterfly garden through the North American Butterfly Association. This association is a non-profit organization that focuses on conservation, education, and research. NABA is the largest butterfly interest group in North America. Geri, the Assistant Library Director, contacted Taylor Kahn from the Recreation, Parks, and Arts Department to work with them on creating the new garden. Taylor was very enthusiastic about it from the beginning. Keeping the criteria for a NABA certified garden in mind they purchased native Florida plants and also renovated the pond and waterfall. Once the preliminary changes had been made the garden was submitted to NABA and received certification! Some of the plants added to our butterfly garden include: milkweed, false heather, firecracker, penta, lantana, and porterweed. Phase II of the garden was kicked off by a Greater Largo Library Foundation donor who spoke to Elliot, the Director of GLLF, and Casey about how much she enjoyed the new butterfly garden and how much she loved gardening in her own life. She suggested, planned, and funded additional renovations to the courtyard including more trees and plants, boulders and ground coverings. As well as, furniture, a shade structure, lighting, new artwork, signage, and a new paved area for additional outdoor programming space. We're so excited and pleased with how the butterfly garden came out and we hope you come out and enjoy it as well! And now it's time for Book Traveler, with Victor: Welcome to a new edition of Book Traveler. Today I will be talking about a new book in the Spanish collection, called Aristotle and Dante Submerge in the Waters of the World by Benjamin Alire Sáez. Synopsis: In Aristotle and Dante Discover the Secrets of the ...

Educator and Disability Justice Advocate Shayda (she/her) joins Josie today to discuss issues related to justice and liberation of our bodyminds, including the intersection of Disability Justice and Reproductive Justice. This episode touches upon accessibility, sustainability, and advocating for our needs for all.Follow Shayda on Instagram and check out her Website.Learn more about Sins Invalid, their Disability Justice Primer, and the Sins Invalid Coloring Book. Also check out the Nap Ministry and Reproductive Justice/Disability Justice.

In this episode we spoke to Patty Berne, co-founder and executive director of Sins Invalid, a performance and disability justice movement organization. Vulnerable populations in our society tend to be devalued, marginalized, and treated as powerless. Devaluing people is the first step toward dehumanization, and in its place we start a process of “othering.” When disabled people are made “other” their artistry risks becoming fetishized. Counteracting this begins with centering each other's humanity, which is an essential element in the work of Patty and Sins Invalid.

In this conversation, Beatrice Adler-Bolton—disability justice advocate and co-host of Death Panel Podcast—says something twice:"Under capitalism, you're only entitled to the survival you can buy." Her forthcoming co-authored book is called, provocatively, Health Communism. Part of its argument is that we have to imagine a society in which everyone is entitled to the survival we can share.How disquieting it is that the natural instinct we have as individuals to ask:  "What is this going to cost me?" is microcosmic to neoliberal obsessions—austerity, productivity, and dreams of a better future purchased with moral sacrifices in the present. It's microcosmic to the brutal decisions our societies are now making about who is worthy of protection and who isn't, and which political constituencies we can't afford to piss off by appealing to the small amount of generosity and humility it takes to wear a mask. We're living in a culture of What is it going to cost me? And that's not really a culture at all.If we don't do better, then how exactly are the conspiritualists wrong? Not about the details, but about the existential condition. They imagine a Cabal at the top of everything, making nefarious decisions, and this is easy to dismiss. Less easy to dismiss is the feeling they articulate, that many of us share: that unseen and impersonal forces are working against the spirit of human generosity. They know that sometimes we all feel ourselves participating in that process, which means we have to do something—perhaps as radical as waking up. Not to the magic of turmeric, or the realization that we're starseeds. Something far more radical than that, and much more mundane: that we can organize ourselves in more fair and loving ways.Beatrice Adler-Bolton is a blind/low vision and chronically ill artist, writer, and disability justice advocate. Beatrice studies radical patient groups and the capitalist political economy of health as an independent researcher and is earning a master's in Disability Studies at CUNY. She is the co-host of the Death Panel podcast with Artie Vierkant and Phil Rocco.Note from Beatrice: If you'd like to give your listeners a little more info on Disability Justice (DJ), I would recommend this link from Sins Invalid, which is a short and foundational DJ text and a really quick primer on what it is written by Patty Berne and Sins Invalid: tinyurl.com/DJ10Principles.

The Disability Advocate & Co-Founder Of Krip-Hop NationIn this episode Durell is joined by Emmy award winning, creative, activist, author and the Co-Founder of “Krip-Hop Nation” Leroy Moore. Durell and Leroy begin the episode discussing how they got connected through their mutual colleague and friend Roger Braithwaite. Durell shares that oftentimes the special needs community is forgotten about and he's so glad to connect with Leroy who has made it his life's work to make sure that people who live with disabilities have a voice and feel included. Leroy shares that he has an issue with the way that Hollywood tries to act like they care about disability and inclusion nowadays like it's new when people with disabilities have been around since Moses. Durell and Leroy both share and in agreement that people with disabilities do need to be taken seriously because their voice does matter. Leroy shares that he and his partner Keith Jones started “Krip-Hop” which has become an internationally known organization on SSI dollars. Leroy says that he believes that if you want to see things happen just start shit. Leroy shares that he started 3 different organizations all on SSI dollars. Leroy shares that it's very possible to make things happen if you are determined. Durell shares that he attended Full Sail University and received a free education because of the fact that he has a disability by taking advantage of the options presented to him. After graduation he shares that he was picked up by a job advocacy agency but he knew they wouldn't be able to assist him because they didn't have the relationships within the entertainment industry. He shares that they proceeded to hire him for a few months but they didn't ask him to come back after the holiday break and after that is when he made the decision to allow his disability to work for him and not against him. Durell and Leroy both agree that many organizations and companies don't really care or want to employ people with disabilities. Leroy shares that the US government doesn't truly follow the law when it comes to providing opportunities for jobs for people with disabilities. Durell asks Leroy where he is originally from and he shares that he was born in New York City and grew up in Hartford, Connecticut. He shares that he moved to the Bay area in 1991 and now lives in Los Angeles. Durell asks Leroy about his earliest memories of music. He shares that he first loved hard rock with bands such as AC-DC and Ozzy Osbourne. He shares that he had a variety of musical taste because he grew up in the suburbs. He was definitely taken back by hip-hop when he first heard it in the late 70's but began to really love it. Leroy also is a huge fan of Blues music and he said there is a lot of disabled representation within the blues genre. Durell asks Leroy to define what exactly is “Krip-Hop Nation”. Krip-Hop is an international organization of disabled creatives that was started over 15+ years ago.. He shares that he and his co-founders started Krip-Hop because they didn't see any representation of disabled people in hip-hop and they wanted to be able to see that. He shares that he is trying to start a Krip-Hop institute in Los Angeles so that disabled creatives can have a place to come and learn about hip-hop and how to find their place and be heard. Durell asks Leroy about his work with Poor Magazine which dates back to the 1990's. He shares that he was doing open mics performing poetry and then was asked to become a writer for the magazine with a column called “Illin & Chillin'. Leroy shares that one of the first pieces he wrote was about a police shooting in LA that involved a disabled black woman named Margaret L. Mitchell. Leroy has founded organizations such as the National Black Disability Coalition, Disability Advocates Of Minorities Organization and Sins Invalid. He shares that he had the opportunity to travel to the UK and saw black disabled people organizing for the ability to be heard for various issues. He really wanted to focus on black and brown disabled people being able to have a voice and knew that after what he witnessed in his trip to London change had to take place. Leroy and Durell talk about some of his cultural work. He created a film documentary entitled “Where Is Hope: Police Brutality Against People With Disabilities” , released spoken word CD's, poetry books, and a children's book called “Black Disabled Art History 101''. He had been an advocate for police brutality for black and brown disabled men and women dating back to the 1980's. He shares that his documentary was done right around the time that the Black Lives Matter movement started and while he reached out to many of the activist groups he says no one wanted to get involved with the documentary. He shared that the documentary has been shown in several Universities around the nation. Leroy also did a CD around police brutality and people with disabilities. Leroy and Durell talk about the graphic novel that he published in 2019 entitled “Krip-Hop Graphic Novel Issue 1: Brown Disabled Young Woman Superhero Brings Disability Justice To Hip-Hop”. He shared that the novel was published by Poor Press. He shares that the lead character, who is a disabled woman, had low self-esteem until she discovered Krip-Hop. Durell and Leroy end the episode talking about some of the amazing work that he did that featured some African disabled musicians from Uganda, Tanzania and The Democratic Republic Of Congo as part of The Bay area tour sponsored by Krip-Hop Nation. Leroy shares how in Africa there isn't federal money to give people with disabilities money as there is in the USA. Leroy says that he didn't have a grant to help with any funding and that the musicians all stayed in his apartment . He shares that all of the work that was done has been out of his pocket as well as his co-founders. Durell and Leroy also talk about some of the awards that he received for his advocacy work. He received awards from The San Francisco Mayor's Disability Council, Local Hero from KQED Public TV and he was named Champion Of Disabled Black People by The San Francisco Bayview Newspaper on Black Appreciation Media Night. He also talks about why he decided to pursue his Ph.D in Anthropology from UCLA and why he decided to write his upcoming book.For more information on Leroy Moore, please visit his website below:https://kriphopnation.com/

The Disability Advocate & Co-Founder Of Krip-Hop NationIn this episode Durell is joined by Emmy award winning, creative, activist, author and the Co-Founder of “Krip-Hop Nation” Leroy Moore. Durell and Leroy begin the episode discussing how they got connected through their mutual colleague and friend Roger Braithwaite. Durell shares that oftentimes the special needs community is forgotten about and he's so glad to connect with Leroy who has made it his life's work to make sure that people who live with disabilities have a voice and feel included. Leroy shares that he has an issue with the way that Hollywood tries to act like they care about disability and inclusion nowadays like it's new when people with disabilities have been around since Moses. Durell and Leroy both share and in agreement that people with disabilities do need to be taken seriously because their voice does matter. Leroy shares that he and his partner Keith Jones started “Krip-Hop” which has become an internationally known organization on SSI dollars. Leroy says that he believes that if you want to see things happen just start shit. Leroy shares that he started 3 different organizations all on SSI dollars. Leroy shares that it's very possible to make things happen if you are determined. Durell shares that he attended Full Sail University and received a free education because of the fact that he has a disability by taking advantage of the options presented to him. After graduation he shares that he was picked up by a job advocacy agency but he knew they wouldn't be able to assist him because they didn't have the relationships within the entertainment industry. He shares that they proceeded to hire him for a few months but they didn't ask him to come back after the holiday break and after that is when he made the decision to allow his disability to work for him and not against him. Durell and Leroy both agree that many organizations and companies don't really care or want to employ people with disabilities. Leroy shares that the US government doesn't truly follow the law when it comes to providing opportunities for jobs for people with disabilities. Durell asks Leroy where he is originally from and he shares that he was born in New York City and grew up in Hartford, Connecticut. He shares that he moved to the Bay area in 1991 and now lives in Los Angeles. Durell asks Leroy about his earliest memories of music. He shares that he first loved hard rock with bands such as AC-DC and Ozzy Osbourne. He shares that he had a variety of musical taste because he grew up in the suburbs. He was definitely taken back by hip-hop when he first heard it in the late 70's but began to really love it. Leroy also is a huge fan of Blues music and he said there is a lot of disabled representation within the blues genre. Durell asks Leroy to define what exactly is “Krip-Hop Nation”. Krip-Hop is an international organization of disabled creatives that was started over 15+ years ago.. He shares that he and his co-founders started Krip-Hop because they didn't see any representation of disabled people in hip-hop and they wanted to be able to see that. He shares that he is trying to start a Krip-Hop institute in Los Angeles so that disabled creatives can have a place to come and learn about hip-hop and how to find their place and be heard. Durell asks Leroy about his work with Poor Magazine which dates back to the 1990's. He shares that he was doing open mics performing poetry and then was asked to become a writer for the magazine with a column called “Illin & Chillin'. Leroy shares that one of the first pieces he wrote was about a police shooting in LA that involved a disabled black woman named Margaret L. Mitchell. Leroy has founded organizations such as the National Black Disability Coalition, Disability Advocates Of Minorities Organization and Sins Invalid. He shares that he had the opportunity to travel to the UK and saw black disabled people organizing for the ability to be heard for various issues. He really wanted to focus on black and brown disabled people being able to have a voice and knew that after what he witnessed in his trip to London change had to take place. Leroy and Durell talk about some of his cultural work. He created a film documentary entitled “Where Is Hope: Police Brutality Against People With Disabilities” , released spoken word CD's, poetry books, and a children's book called “Black Disabled Art History 101''. He had been an advocate for police brutality for black and brown disabled men and women dating back to the 1980's. He shares that his documentary was done right around the time that the Black Lives Matter movement started and while he reached out to many of the activist groups he says no one wanted to get involved with the documentary. He shared that the documentary has been shown in several Universities around the nation. Leroy also did a CD around police brutality and people with disabilities. Leroy and Durell talk about the graphic novel that he published in 2019 entitled “Krip-Hop Graphic Novel Issue 1: Brown Disabled Young Woman Superhero Brings Disability Justice To Hip-Hop”. He shared that the novel was published by Poor Press. He shares that the lead character, who is a disabled woman, had low self-esteem until she discovered Krip-Hop. Durell and Leroy end the episode talking about some of the amazing work that he did that featured some African disabled musicians from Uganda, Tanzania and The Democratic Republic Of Congo as part of The Bay area tour sponsored by Krip-Hop Nation. Leroy shares how in Africa there isn't federal money to give people with disabilities money as there is in the USA. Leroy says that he didn't have a grant to help with any funding and that the musicians all stayed in his apartment . He shares that all of the work that was done has been out of his pocket as well as his co-founders. Durell and Leroy also talk about some of the awards that he received for his advocacy work. He received awards from The San Francisco Mayor's Disability Council, Local Hero from KQED Public TV and he was named Champion Of Disabled Black People by The San Francisco Bayview Newspaper on Black Appreciation Media Night. He also talks about why he decided to pursue his Ph.D in Anthropology from UCLA and why he decided to write his upcoming book.For more information on Leroy Moore, please visit his website below:https://kriphopnation.com/

Today we're exploring the word “disability.” What does disability mean to you?A Kids Book About: The Podcast, Episode 7, Kristine Talks About Disabilitieshttps://a-kids-book-about-the-podcast.simplecast.com/episodes/kristine-talks-about-disabilitiesPatty Berne quote from “Skin, Tooth, and Bone: The Basis of Movement is Our People” a Disability Justice primer by Sins Invalid https://www.sinsinvalid.org/disability-justice-primer10 Principles of Disability Justice https://www.sinsinvalid.org/blog/10-principles-of-disability-justiceDisability Art & Culture Project http://dacp.art/Do you have a word you'd like us to consider for a future episode? Email us at listen@akidspodcastabout.com. And check out other podcasts made for kids just like you by visiting akidsco.com.

Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is a long-term disease thats main symptom is a fatigue that feels very different to ordinary tiredness and may take a day or two to kick in after physical, mental or emotional exertion. Listen in to Noli's experience of living with ME/CFS and how she got her mom to be her photography assistant along the way. Follow Noli: https://www.instagram.com/myfragileself/ https://www.myfragileself.com/ Sins Invalid: https://www.sinsinvalid.org/ Follow Still Positive: https://www.instagram.com/stillpositivepodcast/ spoti.fi/3rMHbVe Wanna chat on Still Positive? Email: stillpositivepodcast@gmail.com Follow Dayna: https://www.instagram.com/_____DaynaMarie https://twitter.com/runnnDMC/ MUSIC: Laces Out Follow Laces Out: https://www.instagram.com/lacesOutTheBand/ https://open.spotify.com/artist/6t0pKS38SySAK9tQfKE69o?si=lTLaqgAjQv-CjhHIGOYocw

This episode, Judy chats with Leroy Moore and Keith Jones, the co-founders of Krip Hop Nation. Enjoy their discussion with Judy about the work they're doing, together and individually, as artists and activists. The transcript for this episode is available here. 2021 Emmy award winning Leroy F. Moore Jr. is the founder of Krip Hop Nation. Since the 1990s, Moore has been a key member of Poor Magazine, starting with the column "Illin-N-Chillin" and then as a founding member of the magazine's school, the Homefulness and Decolonize Academy. Moore is one of the founding members of National Black Disability Coalition and an activist around police brutality against people with disabilities. Leroy has started and helped start organizations including Disability Advocates of Minorities Organization, Sins Invalid, and Krip-Hop Nation. His cultural work includes the film documentary Where Is Hope, Police Brutality Against People with Disabilities, spoken-word CDs, poetry books and the children's book Black Disabled Art History 101 published by Xochitl Justice Press. His graphic novel Krip-Hop Graphic Novel Issue 1: Brown Disabled Young Woman Superhero Brings Disability Justice to Hip- Hop was published in 2019 and 2020 under Poor Press. Moore has traveled internationally networking with other disabled activists and artists. In fall of 2021, Leroy started his Ph.D. in Anthropology at UCLA. Moore has written, sang and collaborated to do music videos on Black disabled men. In July 2019 Leroy Moore under Krip-Hop Nation organized African Disabled Musicians San Francisco Bay Area Tour with disabled musicians from Uganda, Tanzania and The Democratic Republic of the Congo. In 2021 Leroy Moore published a book about Black disabled young men under SoulfulMediaWorks. Leroy has won many awards for his advocacy from the San Francisco Mayor's Disability Council under Willie L. Brown to the Local Hero Award in 2002 from Public Television Station, KQED in San Francisco and in 2014, San Francisco Bayview Newspaper named Leroy, Champion of Disabled People in the Media on Black Media Appreciation Night. Keith Jones is the President and CEO of SoulTouchin' Experiences. An organization aimed at bringing a perspective to the issues of access inclusion and empowerment, which affect him as well as others who are persons with a disability. Along with Mr. Leroy Moore the two men co-founded Krip Hop Nation an international collective of artist with disabilities. The tag line of Krip Hop Nation is, "Its more than music..." Mr. Jones is also extremely active in multi-cultural, cross-disability education and outreach efforts. Mr. Jones works to not only educate the disability community about enhanced community living, but also the community at large. Mr. Jones holds a strong desire to get the disability community more involved in the issues that concern their own lives and provides outreach support in relationship to the arts and independent living skills. Mr. Jones has been recognized for his emerging leadership by the state of Massachusetts and President's Commission for Employment for People with Disabilities. Over his years as and advocate Mr. Jones has been awarded New Leadership Development Award From The President's Committee on Employment of People with Disabilities. The Commonwealth Coalition's Progressive Leadership Award the 2006 Moro Fleming Consumer Involvement Award from the Massachusetts Rehabilitation Commission, with as well as, a recent graduate of the inaugural class of Initiative for Diversity in Civic Leadership. Also, in 2008 long shot 2008 U S Senatorial bid based on "Fulfilling America's Promise". Also, Mr. Jones was the Disability Law Center's 2011 Individual Leadership Award. While at the same time Mr. Jones continued his artistic endeavors. Krip Hop Nation Soul Touchin' Experiences LLC "Honoring" poem-song by Leroy Moore and Gabriel Wilson for Black History Month

‘Crip Kinship: The Disability Justice & Art Activism of Sins Invalid'

We are back and in conversation about Disability Justice! Shayda and Ashley introduce the magic of disability justice, accessibility, and more. We conversate about disability justice history, how accessibility is framed within different communities, as well as Shayda's new book, Crip Kinship: The Disability Justice Activism of Sins Invalid, out NOW! Shayda will be doing virtual book tour stops throughout the month, so be sure to follow her for more details. Follow us on Instagram, @disruptingplace for resources, updates, and to contact us! Music for this podcast comes from Still Awake by Ghostrifter Official | https://soundcloud.com/ghostrifter-official. We do not own this song.

Part 2 of our 3-Part Series exploring Equity and Inclusion created in partnership with https://www.shelizajamal.com/ (Curated Leadership), founded by Sheliza Jamal. The series includes conversation on inclusion, accessibility, equity, and radical self-love. Episodes in this series are supported by https://www.arts.on.ca/home (Ontario Arts Council).  Civil Rights leader Fannie Lou Hamer once said, “nobody's free until everybody's free.” Syrus Marcus Ware goes even further by saying “if we made the world safer for Black Trans women with disabilities (the most marginalized and oppressed people), we'd be making the world safer for everyone.” In this episode Syrus uses a disability justice framework to help us connect the dots between accessibility and equity. Developing an awareness of how an individual's marginalized identities impact their access to power helps us understand and identify how best to meet their respective needs. From this conversation we learn that accessibility is not about checking boxes, but about continuously transforming our interactions with people to create comfortable experiences and environments where the most marginalized can thrive. Notable Mentions and Resources: Disability Justice Framework: https://www.sinsinvalid.org/news-1/2020/6/16/what-is-disability-justice (What is Disability Justice), Sins Invalid, 2020 Concept of “One Size Fits One” by https://www.jdderbyshire.com/about (Jan Derbyshire), Writer, Mad Activist, Theatre Maker. https://www.workinculture.ca/FYI/WorkInCulture-Connects/September-2019/So,-you-Built-a-Ramp%E2%80%A6Community-Engagement-and-Mean (So, You Built a Ramp…Community Engagement and Meaningful Outreach), Emily Gillespie, 2019 Intersectionality Framework first coined by http://historyisaweapon.com/defcon1/combrivercoll.html (Combahee River Collective); expanded by https://www.vox.com/the-highlight/2019/5/20/18542843/intersectionality-conservatism-law-race-gender-discrimination (Kimberlé Crenshaw,) Critical Race Theory Scholar. “Nobody's free until everybody's free.” https://www.womenshistory.org/education-resources/biographies/fannie-lou-hamer (Fannie Lou Hamer), Civil Rights Leader. Learn more about https://www.creativeworksconference.com/hustlenthrive (Hustle & Thrive).

Non-visual artist Carmen Papalia speaks with Al Etmanski about the rampancy of ableism across institutions — from the art world to healthcare, to the symbol of the white cane. Carmen and Al discuss how institutions can be sites of retraumatization that can often overlook and underappreciate variations in ability. Carmen also explores some key ideas central to disability justice, provides some suggestions on how to be a good ally, and considers how accessibility is dependent on the social, cultural, and political conditions of a space and the people within it. Carmen speaks about some of his works, including White Cane Amplified, Mobility Device, and Open Access, drawing out his own positions on the topic of disability, and the importance of mutual aid within the disability community. “At the heart of disability justice is the idea of mutual aid, which means building a capacity for care that isn’t otherwise available.” - Carmen Papalia Read the full transcript of this episode: https://www.sfu.ca/sfuwoodwards/community-engagement/Below-the-Radar/transcripts/carmen-papalia/ Resources: — Carmen Papalia’s website: https://carmenpapalia.com/ — Vocal Eye: http://www.vocaleye.ca/ — Open Access by Carmen Papalia: https://carmenpapalia.com/2015/08/21/open-access/ — “An Accessibility Manifesto for the Arts” - Canadian Art: https://canadianart.ca/essays/access-revived/ — White Cane Amplified by Carmen Papalia: https://carmenpapalia.com/2015/03/01/white-cane-amplified/ — Mobility Device by Carmen Papalia: https://carmenpapalia.com/2013/06/01/mobility-device/ — Sins Invalid: https://www.sinsinvalid.org/ — Skin, Tooth, and Bone: The Basis of Movement is Our People, a Disability Justice primer by Sins Invalid: https://www.sinsinvalid.org/disability-justice-primer — Review of Skin, Tooth, and Bone: The Basis of Movement is Our People: https://disabilityarts.online/magazine/opinion/sins-invalid-skin-tooth-bone-basis-movement-people-disability-justice-primer/ — Sins Invalid access suggestions for mobilizations: https://www.sinsinvalid.org/blog/access-suggestions-for-mobilizations — Sins Invalid access suggestions for public events: https://www.sinsinvalid.org/blog/access-suggestions-for-a-public-event — Disability Filibuster for Bill C-7: https://disabilityfilibuster.ca/

Episode transcript available here.No Body/Mind Left Behind Show Notes This conversation between Disability Justice activist and educator Alex Locust, aka the Glamputee, and U of T Disability Justice leaders, centres lived experiences and explores how Disability Justice offers a framework to create a society that uplifts all people, where no body/mind is left behind. Our panel speaks honestly about claiming power through representation, activism, and self-care, challenging capitalism and toxic notions of productivity, and what it means to embody disability justice in our activism, planning, and the day to day. This episode captures a conversation held in November 2020 at the Diversity Moves Us Conference organized by U of T's Sport & Recreation's Diversity & Equity. With heartfelt gratitude to our panelists, and Robin Waley. Produced in partnership with KPE. Panelists Alex Locust @glamputeeJheanelle Anderson, MSW Grad, Disability Justice Network of Ontario Board Member Alisha Krishna, U of T Law student, Students for Barrier Free Access Board member Beau Hayward, Equity Initiative Student Lead, Sport and Rec Facilitated by Day Milman, Hart House Resources and mentions:Sins Invalid 10 Principles of Disability Justice https://www.sinsinvalid.org/blog/10-principles-of-disability-justiceStudents for Barrier Free Access link https://uoftsba.wordpress.com/ Disability Justice Network of Ontario https://www.djno.ca/U of T Sports and Rec Diversity and Equity https://kpe.utoronto.ca/aboutstudent-outreach/diversity-equityShe's All Fat https://shesallfatpod.com/Patty Berne https://en.wikipedia.org/wiki/Patricia_(Patty)_BerneLeah Lakshmi https://brownstargirl.org/ Leroy Moore @kriphopnationMia Mingus https://leavingevidence.wordpress.com/about-2/Sebastian Margaret https://transgenderlawcenter.org/about/staff-and-board/sebastian-margaretMutual Aid https://en.wikipedia.org/wiki/Mutual_aid_(organization_theory)TL Lewis https://www.talilalewis.com/about.htmlEli Clair   https://eliclare.com/ https://en.wikipedia.org/wiki/Stacey_Milbernadrienne maree brown http://adriennemareebrown.net/Alice Wong Access is Love Project https://disabilityvisibilityproject.com/2019/02/01/access-is-love/Myrna Mcallum https://traumainformedlegal.ca/ 

Today Sima talks with Purple Fire Crow/Antoine Hunter, an award-winning African, Indigenous, Deaf, Disabled, Two Spirit producer, choreographer, film/theater actor, dancer, dance instructor, model, poet, speaker, mentor, and Deaf advocate. He teaches dance and ASL in both Hearing and Deaf communities and is the founder and artistic director of Urban Jazz Dance Company. Hunter has performed with many Bay Area dance companies, including Savage Jazz Dance Company, Nuba Dance Theater, Alayo Dance Company, Robert Moses’ KIN, Man Dance, Sins Invalid, Amara Tabor-Smith, Kim Epifano, PUSH Dance Company, Flyaway Productions, Joanna Haigood, OET theater, and the Lorraine Hansberry Theater. He has been producing the acclaimed Bay Area International Deaf Dance Festival since 2013. Transcripts of this episode are available at odc.dance/stories.

About Syan Rose: Syan Rose is an illustrator and comic artist whose work plays with both surrealist and representational imagery to approach topics of personal history, politics, accountability, and healing. She’s been published in Bitch, Slate, Gay Magazine, Truthout, and Autostraddle, and has self-produced many comics and zines. Leah Lakshmi Piepzna-Samarasinha is a queer disabled femme writer and performer of Burgher/Tamil Sri Lankan and Irish/Roma ascent. Her most recent titles are the nonfiction book Care Work: Dreaming Disability Justice (2018) and the poetry book Tonguebreaker (2019). Her memoir Dirty River was a finalist for a Lambda Literary Award and a Publishing Triangle Award (Judy Grahn Award for Lesbian Nonfiction). She is also author of the poetry books Bodymap and Love Cake (Lambda Literary Award winner) and Consensual Genocide, and co-editor of The Revolution Starts At Home: Confronting Intimate Violence in Activist Communities. She is the co-founder of Mangos With Chili, North America's touring queer and trans people of colour cabaret, and is a lead artist with the disability justice incubator Sins Invalid. About Our Work Is Everywhere: An Illustrated Oral History of Queer and Trans Resistance: A visually stunning graphic non-fiction book on queer and trans resistance. Over the past ten years, we have witnessed the rise of queer and trans communities that have defied and challenged those who have historically opposed them. Through bold, symbolic imagery and surrealist, overlapping landscapes, queer illustrator and curator Syan Rose shines a light on the faces and voices of these diverse, amorphous, messy, real, and imagined queer and trans communities. In their own words, queer and trans organizers, artists, healers, comrades, and leaders speak honestly and authentically about their own experiences with power, love, pain, and magic to create a textured and nuanced portrait of queer and trans realities in America. The many themes include Black femme mental health, Pacific Islander authorship, fat queer performance art, disability and health care practice, sex worker activism, and much more. Accompanying the narratives are Rose's startling and sinuous images that brings these leaders' words to visual life. Our Work Is Everywhere is a graphic non-fiction book that underscores the brilliance and passion of queer and trans resistance. Includes a foreword by Lambda Literary Award-winning author and activist Leah Lakshmi Piepzna-Samarasinha, author of Care Work: Dreaming Disability Justice. Full-colour throughout.

Lydia X. Z. Brown, Leah Lakshmi Piepzna-Samarasinha, and Katie Tastrom join Tristan Taormino to talk about disability justice, sex, and relationships. We explore the question: what does it mean to apply a Disability Justice lens to sexuality and sex-positive culture? What are the effects when Black and Brown disabled people are hypersexualized, desexualized or degendered? On an interpersonal level, desexualization assumes disabled folks don’t have agency or skill when it comes to their sexuality and can put pressure on them to perform a kind of hypersexuality. We discuss desirability and undesirability, strength-based approaches to disability and sexuality, disabled sex workers, and the overwhelming amount of sexual violence disabled people face. We also delve into ableism, politics, and representation in the legal case of Marjorie Anna Stubblefield who had a sexual relationship with D.J., a non-verbal man with cerebral palsy. This episode is sponsored by Calm and Dipsea. Lydia X. Z. Brown is a disability justice advocate, organizer, educator, attorney, strategist, and writer whose work has largely focused on interpersonal and state violence against multiply-marginalized disabled people living at the intersections of race, class, gender, sexuality, nation, and language. They are Policy Counsel for the Privacy and Data Project at the Center for Democracy and Technology; Adjunct Lecturer in Disability Studies for Georgetown University; and Director of Policy, Advocacy, and External Affairs at the Autistic Women & Nonbinary Network. They are also founder and volunteer director of the Fund for Community Reparations for Autistic People of Color's Interdependence, Survival, and Empowerment. Currently, they serve as a founding board member of the Alliance for Citizen Directed Supports, presidential appointee to the American Bar Association's Commission on Disability Rights, and chair of the American Bar Association's Section on Civil Rights & Social Justice, Disability Rights Committee. In 2015, Lydia was named to Pacific Standard's 30 Top Thinkers Under 30 list, and to Mic’s list of 50 impactful leaders, cultural influencers, and breakthrough innovators. In 2018, NBC featured them as one of 26 Asian Pacific American breakthrough leaders for Asian Pacific American Heritage Month, and Amplifier featured them as part of the We The Future campaign for youth activism. Leah Lakshmi Piepzna-Samarasinha is just another middle aged mixed-race rust belt autistic aging queerpunk, and a queer disabled and autistic nonbinary femme writer, performer, educator freedom dreamer, and disability and transformative justice movement worker of Burgher/Tamil Sri Lankan, Irish and Roma ascent. She is the 2020 winner of the Lambda Literary Foundation's Jean Cordova Prize for Lesbian/Queer Nonfiction, and is the author and co-editor of nine books, including Beyond Survival: Strategies and Stories from the Transformative Justice Movement (co-edited with Ejeris Dixon), Tonguebreaker, Care Work: Dreaming Disability Justice,Bridge of Flowers, Bodymap, Dirty River, The Revolution Starts At Home: Confronting Intimate Violence in Activist Communities (coedited with Ching-In Chen and Jai Dulani), Love Cake and Consensual Genocide. Their work has won the Lambda and been shortlisted four times for the Publishing Triangle Award.  A lead artist for the disability justice performance collective, Sins Invalid, since 2009, Leah also co-created the collectives Performance/Disability/Art, Mangos With Chili, and Toronto’s Asian Arts Freedom School and is currently on the programming team for the Disability and Intersectionality Summit. They believe in the power of storytelling and witnessing, being an everyday-ass human being, the power of disability justice to create an abolitionist present and future, crip and Crazy person brilliance, and the unpredictable future. Raised in Worcester, MA, they currently live in South Seattle, unceded Duwamish territories.    Katie Tastrom is a writer and sex worker based in Upstate NY who focuses on disability justice, sexuality, and abolition. Her most recent article was in HuffPost.  

Language is powerful, and the way we talk about our bodies, our experiences, and disability is no exception. In episode 2, Qudsiya interviews Dr. Sara Acevedo, Assistant Professor of Disability Studies at Miami University in Ohio. A scholar activist, she works at the intersection of Disability Studies in Anthropology, Neurodiversity, and spatial politics, specializing in critical disability studies. As a disabled woman of color, Sara uses a Disability Justice lens in her teaching and research.In Episode 2, Sara and Qudsiya discuss the complex and fluid relationship between language and disability. They cover the differences between "person-first" and "identity-first" language, the history and impact of the word "Crip," the differences between "inclusion" and "access," and so much more.Links and books mentioned in the episode:Sins Invalid, the 10 Principles of Disability JusticeSkin, Tooth, and Bone: The Basis of Movement is Our People, a Disability Justice PrimerCare Work: Dreaming Disability Justice, by Leah Lakshmi Piepzna-SamarasinhaMia Mingus’ blog, Leaving EvidenceAlice Wong’s Disability Visibility Project and bookThe conversation continues on social media. Follow us @downtothestruts on Twitter and Instagram, and join our Facebook discussion group.Transcript available here.

Greetings to all you magical beings out there! This fortnight, we're discussing A Curse so Dark and Lonely by Brigid Kemmerer. We immensely enjoyed Kemmerer's spin on the whole Beauty and the Beast tradition, and we found Harper to be one of the most relatable and badass protagonists! There's so much about this novel that we found relevant to our pandemic times– especially re: disability, medical debt, . Also, J & K happen to be on different ships this time! Hope you enjoy and learn things and teach us things! Content warning: terminal illness and parental death, rape and sexual assault (mins 20-22). Call to action: This week we're encouraging y'all to “crip” your timelines on social media. Similar to the term “queer,” which was once a slur, crip is being reclaimed by disabled and chronically ill folx. Give some of the accounts below a follow, learn from them, and support them (including with your $$ if possible). *links below to instagram pages unless otherwise specified* Crutches&Spice (@Imani_Barbarin on twitter) disability.connect invalid__art hot.crip uadisabilityculture accesscenteredmovement disability_visability itswalela decolonizingtherapy mia.mingus blackdisabilitycollective queerfutures_ junipercameryn neuroqueerasian ablezine cwaitwaitwait Sami Schalk blackdisabledcreative emapathywarrior Sky Cubacub Johanna Hedva queernature access_guide_ coffeespoonie (on twitter) Also check out the work of Sins Invalid, a group based in Tongva territory (aka the Bay Area), and the Disability Visibility Podcast. Support local mutual aid efforts and the disabled ppl in your life!! Our education doesn't stop there, of course. Reach out to share other sources you find along the way! We make a few SJM and ACOTAR comparisons throughout the episode. One that note, we've been enjoying the reaction posts by bookstagrammer @_litmedown. So funny!!! love love love. Some CP resources from the CDC and Mayo Clinic K recommends the documentary Crip Camp: A Disability Revolution (on Netflix). Watch the Crip Camp trailer. We talk about how time travel is much more complicated when you aren't cis-white-abled man. Like, what about chronic illness? and being a person of color? Here's an informative interview about C. diff and Inflammatory Bowel Disease. So yeah, regency era medical treatment definitely wouldn't have been able to keep up (or keep us alive). We'll be setting our novels featuring sick characters some other time/place, thx. Time for our periodic reminder: Don't call the f*cking cops! BLACK LIVES MATTER 12 Things to Do Instead of Calling the Cops [CW racist police violence ] “If you love me do not call the police” Watch this video by Angela C Styles if you want to know more about hair types and textures. Send us your other “Smells Like YA” moments!! K's hot take is that compulsory heterosexuality is a curse. *insert prove me wrong meme* Transcript to come Spring 2021 As always, we'd love to be in discussion with you, magical folx. Post or tweet about the show using #criticallyreading. Let us know what you think of the episode, anything we missed, or anything else you want us to know by dropping a line in the comments or reaching out to us on twitter or Instagram (@thelibrarycoven), or via email (thelibraycoven@gmail.com). You can also check out the show notes on our website, thelibrarycoven.com. We really appreciate ratings and reviews on iTunes, Google Podcasts, Spotify, or any other platforms. Help us share the magic by spreading the word about the podcast! Please support our labor by leaving us a one-time tip on Ko-fi or purchasing books from our Bookshop! Even better yet, become a monthly patron via Patreon and you can unlock a bunch of exclusive perks like mini-sodes, bonus episodes, and access to our community of reader-listeners on Discord. The podcast theme song is “Unermerry Academy of Magics” by Augustin C from the album “Fantasy Music”, which you can download on FreeMusicArchive.com. JK,

Stacey Park Milbern was an expert at organizing people. A self-identifying queer disabled woman of color, Stacey organized to help her move from North Carolina to the Bay Area so that she could live independently as a disabled person. Stacey was a well known leader within the disability justice movement. And her activism extended beyond people living with disabilities and to other communities that are often excluded — people of color, queer folks, and people living on the streets. She passed away this month at the age of 33. Guest: Andraéa LaVant, Stacey’s friend and co-impact producer on the new Netflix documentary Crip Camp Tap the links to see conversations with Stacey from Sins Invalid, Disability Visibility Project, and the Barnard Center for Research On Women. For a full transcript of this episode, visit the web post here.

Episode 002 | Alex Blaszczuk (Filmmaker) joins the podcast to talk about her new documentary "Speaking Nearby." Alex also discusses travel accessibility as a wheelchair user, the communal aspect of film crews, and more. To learn more about Alex's film, visit: speakingnearby.com | Alex's featured non-profit was Sins Invalid - a disability justice based performance project. To learn more, visit: sinsinvalid.org | For more on the podcast, visit: seethroughpod.com

0:08 – Moment of silence for Stacey Park, who passed away Tuesday and was at the heart of disability justice organizing in the Bay Area, working with Sins Invalid, founding the Disability Justice Culture Club, campaigning to stop police terror, and fighting deadly PG&E shutoffs through the #PowerToLive campaign. Rest in power, Stacey. 0:09 – Should the U.S. nationalize the vaccine sector? Dana Brown of the Next System Project draws on recent history to point out examples where privatized vaccine development and bureaucratic hurdles delayed life-saving medicine, and proposes an alternative. 0:34 – The Sonoma County Undocufund, founded in 2017 to provide crucial cash aid to undocumented families in the North Bay barred from accessing government relief during the Tubbs wildfire, has been reactivated to respond to Covid-19. Mara Ventura, executive director of North Bay Jobs With Justice, talks about their work. The fund is still receiving donations here — but they're also calling on state and local government to step in and formalize support for undocumented families. 1:08 – Domestic violence calls to hotlines are skyrocketing across the United States. Colsaria Henderson of Community Overcoming Relationship Abuse and Marissa Seko of the Family Violence Law Center explain how family courts or protective orders are working and what resources survivors can access during the crisis. If you or a loved one needs to talk about domestic violence, you can call CORA's 24-hour hotline at 1-800-300-1080 or the Family Violence Law Center hotline for people who live in Alameda County at 1-800-947-8301. 1:34 – A 28-year-old man from San Francisco, Davohnte Morgan, went missing in Mount Shasta, California two weeks ago. We speak with Morgan's aunt, Ruth Arevalo, about the family's efforts to undertake a search and their difficulty getting help from local law enforcement. Morgan was last seen wearing Nike flip flops, black sweat pants with a white stripe and a black knit turtleneck. If you think you have seen him or may have information about his disappearance, please call 510-493-5998 or 510-470-8083. The post “Domestic violence was a pandemic before this all started,” advocates say — plus, family searches for 28-year-old Davohnte Morgan in Mt. Shasta, and a discussion on nationalizing vaccines appeared first on KPFA.

Christine  lives in the San Francisco Bay Area and, although busy, is always looking for new friends, community, and activity partners! If you'd like to get in touch, the best way is to send her a Facebook message or friend request (https://www.facebook.com/Xine.story) You may also email her at christineastory@gmail.com for a slower response. Also @RainyDayMondays on Instagram This was recorded at Desire Riviera Maya in Cancun. My sweetheart and I were there with the folks from Life on the SwingSet for a little event they call “Swingset takes Desire.” Desire is a swinger resort in Cancun Mexico that is taken over by a group of what I think of as freaks and queers: poly, swinger, kinky, queer, sex positive folks. Some new folks, lots of returners. I interviewed several people and this is one of those. They are a bit out of recording order because of various logistics like getting people’s bios and so on so ignore all that. These were recorded with my iPhone so I’ve done my best with the sound quality. Also the episode references Nomy Lamm – queer, fat icon. Who happens to be one of the fat queers that I also connected with in another place in Fat community. I met met Nomy at https://nolose.org/ I reached out to her to see if she wanted to comment and this is what she said: “hi briana! this sounds amazing. my website is www.nomyteaches.com. you could also mention that I'm the creative director for Sins Invalid - sinsinvalid.org. also if people want access to the first issue of my zine (released in 1993!) here is a link: https://drive.google.com/file/d/0BxM9mTeuGlNaUm5ScUtDNkVXc0k/view?usp=sharing “ So now you can reach out to Nomy and her work and see what a bad ass she is too! Also she’ll hopefully be on an upcoming episode and you can hear her yourselves! Now on to the show snippets! How did you become sex positive? Christine: Oh, I was always a horny little slut. On her partner struggling: not being able to communicate well meant that he didn't have the words to describe how he felt or really to identify it so it was hard to talk about. “Actually all, all of my partners are, are queer men currently, but, um, so he, he's, his main interest is in, in guys like sexually. But he's a varsity cuddler!” On Bi men “There were a lot of men putting their mouths in a lot of places. And we like that!” Queerness and queer invisibility and seeing internalized homophobia. “You know, we didn't know you were queer. We thought you were straight. And he's just like. Well, I have the purple bead, I have the rainbow necklace, I have the rainbow bead. My toenails are painted rainbow. My fingernails are painted. I'm wearing ladies' flip flops. More do I have to do?” We give a lot of love to bi men! “You don't have to be 100% love your body to, to use it in a way that's pleasurable” Also @RainyDayMondays on Instagram

Live at Desire - Xine - Have Pleasure Now!  Christine  lives in the San Francisco Bay Area and, although busy, is always looking for new friends, community, and activity partners! If you'd like to get in touch, the best way is to send her a Facebook message or friend request (https://www.facebook.com/Xine.story) You may also email her at christineastory@gmail.com for a slower response. Also @RainyDayMondays on Instagram This was recorded at Desire Riviera Maya in Cancun. My sweetheart and I were there with the folks from Life on the SwingSet for a little event they call “Swingset takes Desire.” Desire is a swinger resort in Cancun Mexico that is taken over by a group of what I think of as freaks and queers: poly, swinger, kinky, queer, sex positive folks. Some new folks, lots of returners. I interviewed several people and this is one of those. They are a bit out of recording order because of various logistics like getting people’s bios and so on so ignore all that. These were recorded with my iPhone so I’ve done my best with the sound quality. Also the episode references Nomy Lamm – queer, fat icon. Who happens to be one of the fat queers that I also connected with in another place in Fat community. I met met Nomy at https://nolose.org/ I reached out to her to see if she wanted to comment and this is what she said: “hi briana! this sounds amazing. my website is www.nomyteaches.com. you could also mention that I'm the creative director for Sins Invalid - sinsinvalid.org. also if people want access to the first issue of 'i'm so fucking beautiful' (released in 1993!) here is a link: https://drive.google.com/file/d/0BxM9mTeuGlNaUm5ScUtDNkVXc0k/view?usp=sharing “ So now you can reach out to Nomy and her work and see what a bad ass she is too! Also she’ll hopefully be on an upcoming episode and you can hear her yourselves! Now on to the show snippets! How did you become sex positive? Christine: Oh, I was always a horny little slut. On her partner struggling: not being able to communicate well meant that he didn't have the words to describe how he felt or really to identify it so it was hard to talk about. “Actually all, all of my partners are, are queer men currently, but, um, so he, he's, his main interest is in, in guys like sexually. But he's a varsity cuddler!” On Bi men “There were a lot of men putting their mouths in a lot of places. And we like that!” Queerness and queer invisibility and seeing internalized homophobia. “You know, we didn't know you were queer. We thought you were straight. And he's just like. Well, I have the purple bead, I have the rainbow necklace, I have the rainbow bead. My toenails are painted rainbow. My fingernails are painted. I'm wearing ladies' flip flops. More do I have to do?” We give a lot of love to bi men! “You don't have to be 100% love your body to, to use it in a way that's pleasurable” Also @RainyDayMondays on Instagram

In this episode the members of Black Disabled Men Talk discuss the challenges navigating romantic relationships and sexuality as Black disabled men. If you like this episode don't forget to support our patreon page at https://www.patreon.com/blackdisabledmentalk. Thank you. Transcript: Black Disabled Men Talk: Relationships With: Leroy Moore (LM); Keith Jones (KJ); Lateef McLeod (LMC); LM: Okay! This is Leroy Moore on Black Disabled Men Talk. We’re back again, and this time we’re talking about relationships and being a black disabled man. We’re going to go round like we always do, introduce ourselves, then we can jump into the topic. We have like 20 minutes to do this, so let’s do it! So introductions, please, myself and my team. KJ: Hey what’s up my name is Keith Jones. I am the president and CEO of Soul Touching Experiences, an organization built on building inclusive and effective policy.  Also the co-founder of Krip-Hop nation with my twin from another mother, Leroy Moore. LM: Hey! Alright this is Leroy Moore from Krip-Hop Nation, Poor Magazine, also an author, writer, activist in the Bay Area. Yeah, that’s me, I’m glad to be here. Lateef, take it away! LMC: Hello, I am Lateef McLeod and I am poet, writer and scholar. I am a PhD student in the Anthropology and Social Change department at California Institute of Integrative Studies, also the lead committee chair of the International Society of Augmented and Alternative Communication. I’m also working on a poetry book that will come out next year. Also. LM: Alright are you done Lateef? LMC: Also people should donate to our Patreon [repeats] [child in background chattering] KJ: Our Patreon page, yes! I can never say it right. It’ll be, we’ll put the link up with the link. LMC: Okay. LM: So we have the Patreon page, Black Disabled Men Talk, and we’re on acmes so thanks. So let’s get into the topic, the topic is relationships and black disabled men. It could be friends, it could be romantic relationships, but yeah we’re going to talk about that topic. So. Who wants to jump in first with that? KJ: Latif why don’t you go first man? [child chattering, noise] LMC: Well for my position I think romantic relationships for people with disabilities [chime], especially black people with disabilities, in this society is full of challenges, [loud hum in background], heartache, and disappointment. The reason I say that is because I don’t think our communities get our sexuality or our romantic wishes, and think that part of ourselves is trivial to our wellbeing. LM: Yeah I do agree with you, Lateef. Keith ado you want to go? KJ: You can go LM: For me I totally agree. I really don’t think that society sees our sexuality as black disabled men. You know, although today we had a little bit better with our work with Sins Invalid you know, and disabled activists doing the work around it. But I really think that this… can be deeply in the courts. I think it’s going to be… [10.16, inaudible] change. Change in our community about how we think about disability, especially in the black community. The black community is so far behind, you know. We talk about social justice but they’re so far behind, sexuality it just erases it, it’s like going back to the dark ages almost. Recently - not even recently, I think a year and a half now - I’ve been really pumping to be a national black disabled campaign that’s fully funded and fully supported. So we can do that education! It’s not going to come from the courts, it’s not going to come from the disabled caucus, it’s only going to come from our communities. And you know to do that we need support doing, you know funding and other pieces to it. Of course what we’re doing now with our own work - Latif with you writing, Keith Jones with policy and running for president, and mine - we are doing it in our own silos. But you know, a national complete new way of thinking I think it needs to be.

Ishmael Houston-Jones joined us to talk about how dance in NYC has changed since he moved to the city in the 80s The Dance Union www.jbouey.com/podcast/ IG: @thedanceunion FB: www.facebook.com/TheDanceUnion/ *SUPPORT THE DANCE UNION PODCAST* www.patreon.com/danceunion J. Bouey www.jbouey.com/ IG/Twitter: @j_bouey Patreon: www.patreon.com/JBoueyDanceProjects FailSapace class: https://www.failspacenyc.com/rsvp Melanie Greene www.methodsofperception.com/ IG: @laniereene Patreon: https://www.patreon.com/melaniegreene Ishmael Houston-Jones https://www.ishmaelhouston-jones.com/ Lincoln Center: https://www.lincolncenter.org/show/exhibition-archive-in-motion Comptroller Article: https://comptroller.nyc.gov/newsroom/comptroller-stringer-spotlights-creative-sectors-critical-contributions-to-nyc-economy-in-expansive-new-report/ 7 Kinds of Rest: https://advice.shinetext.com/articles/the-7-types-of-rest-you-need-to-actually-feel-recharged/ Sins Invalid www.sinsinvalid.org/ Jazz Dance Direct - www.JazzDanceDirect.com/

Jerron Herman joined us to have the first of many conversations on disability in dance and the challenges that many have faced. The Dance Union www.jbouey.com/podcast/ IG: @thedanceunion FB: www.facebook.com/TheDanceUnion/ *SUPPORT THE DANCE UNION PODCAST* www.patreon.com/danceunion J. Bouey www.jbouey.com/ IG/Twitter: @j_bouey Patreon: www.patreon.com/JBoueyDanceProjects Melanie Greene www.methodsofperception.com/ IG: @laniereene Jerron Herman www.JerronHerman.com/ IG: @jerronherman Danspace Show - http://www.danspaceproject.org/calendar/herman-joyce/ Sins Invalid www.sinsinvalid.org/ Jazz Dance Direct - www.JazzDanceDirect.com/

What do you get when you put a group of people with disabilities, people who are fat, LGBTQIA+, elders and many other sorts on one street corner? No, not a bad joke! You get…a PROTEST to #CloseTheCamps because #NoBodyIsDisposable. Photo by Leslie Mah Hear highlights from speeches, interviews and other live recordings from this powerful show of solidarity at the August 28 ICE protest.  The protest was designed to bring together fat & disability communities as a united front.  It was part of the Month of Momentum:  30 Days of Action to Close the Camps (ICE SF) Photo By Regan Barshear More information about the protest Check out the photos gathered so far.   Add yours to the collection. Hundreds of people supported through an online campaign.  Check the #NoBodyIsDisposable hashtag on social media for hundreds of photos. Read and share scholar activist Caleb Luna's remarks from the action. There was a companion action on the same day organized by Fat Rose folks in Indiana! They had 100 folks come out! Check out the photos. Here's the short list of actions people can take from home. One group to connect with locally is the Coalition to Close the Concentration Camps Bay Area, whose campaign is targeting the tech companies who support ICE. The organizers encourage you to stay in touch with Fat Rose, Disability Justice Culture Club, Hand in Hand and Senior and Disability Action. Organizational Sponsors: Access-Centered Movement (accesscenteredmovement.com) AXIS Dance Company Big Moves Bay Area (bigmoves.org) Community Resources for Independent Living (CRIL) (crilhayward.org) Disability Justice Culture Club Disability Visibility Project (disabilityvisibilityproject.com) Diversability Inc. (mydiversability.com) Disability Rights Education and Defense Fund (DREDF) (dredf.org) Fat Lib Ink (fatlibink.com) Fat Rose (fatrose.org) FAT!SO? (fatso.com) FLARE (The Fat Legal Advocacy, Research, and Education Project) Hand in Hand: The Domestic Employers Network (domesticemployers.org) Health Justice Commons (healthjusticecommons.org) The Icarus Project (theicarusproject.net) Idriss Stelley Foundation (ISF) (bit.ly/IdrissStelley) Justice 4 Kayla Moore (justiceforkaylamoore.wordpress.com) Krip Hop Nation (kriphopnation.com) Making Waves fat swim (makingwavesswim.com) National Association to Advance Fat Acceptance (naafa.org) NOLOSE (nolose.org) PleasureNess Literary Academy/Reclaiming Ugly (pleasurenesslitacademy.com) POOR Magazine/PrensaPobre (poormagazine.org) Pushing Limits Radio (KPFA) (pushinglimitsradio.org) Reclamation Press (reclapress.com) Senior and Disability Action (sdaction.org) Sins Invalid (sinsinvalid.org) Urban Jazz Dance Company (realurbanjazzdance.com) Women's March Disability Caucus ————- Town Hall On Long Term Care Expanding Long Term Services and Supports for All Thursday, September 19 9:45 am – 12 noon Korat Auditorium Downtown Library 100 Larkin St, San Francisco Join us for a town hall about the solving the State's need for affordable long-term supports and services so that we may all live and age with dignity.   Get your free ticket here. By 2030 9 million Californians will be over the age of 65. That's 3 million more than there are today! This unprecedented growth in the senior population is driving a skyrocketing demand for long term services and supports (LTSS), yet we see increasing evidence that paying for these services is bankrupting middle class seniors and their families throughout the state. The event will include a panel discussion with state legislators, Senator Scott Wiener, Assembly member David Chiu and Assembly member Phil Ting on the challenges that seniors and people with disabilities face when seeking affordable long term care and the caregivers who provide these essential services. Food, childcare, Spanish interpretation and other accommodations will be provided. Be sure to fill out the RSVP. This event is hosted by the San Francisco Care Council, including UDW/AFSCME Local 3930, SEIU Local 2015, Caring Across Generations, the California Domestic Workers Coalition, SF Family Caregiver Alliance, Senior and Disability Action, California Foundation for Independent Living Centers, and Hand in Hand: Domestic Employers Network. ———— Agenda de Cuidado: Apoyo a Largo Plazo En Expansión Para Todos Únase a nosotros para un ayuntamiento sobre la solución de la necesidad del estado CA de servicios y apoyos asequibles a largo plazo (LTSS) para que todos podamos vivir y envejecer con dignidad. En 2030, 9 millón Californianos serán mayores de 65 años. Eso es 3 millón más de lo que hay hoy. Este crecimiento sin precedentes en la población de adultos mayores está impulsando una demanda vertiginosa de servicios y apoyos a largo plazo (LTSS). Sin embargo, vemos más y más evidencia de que pagar por estos servicios está llevando a la bancarrota a las personas mayores y a sus familias de clase media en todo el estado. Únase a nosotros para una discusión con legisladores del estado de CA sobre los desafíos que enfrentan las personas mayores y las personas con discapacidades que buscan cuidado a largo plazo asequible y los asistentes personales que brindan estos servicios esenciales. Se proporcionará comida, cuidado de niños, interpretación en español y otros alojamientos. Asegúrese de completar el forma para RSVP. Este evento es organizado por el Consejo de Cuidado de San Francisco, que incluye UDW / AFSCME Local 3930, SEIU Local 2015, Cuidado a Través de Generaciones, la Coalición de Trabajadoras del Hogar, Alianza de Cuidadores Familiares de SF, Acción de Mayor Edad & Discapacidad, La Fundación para Centros de Vivir Independiente de California, y Mano a Mano: El Red de Empleadores Domésticos. The post Close the Camps – Protest Coverage appeared first on KPFA.

Lateef McLeod is building his career as a scholar and an author. He has earned a BA in English from UC Berkeley and a MFA in Creative Writing from Mills College. He is now a student in the Anthropology and Social Change Doctoral program at California Institute for Integral Studies in San Francisco. He published his first poetry book entitled A Declaration Of A Body Of Love in 2010 chronicling his life as a black man with a disability and tackling various topics on family, dating, religion, spirituality, his national heritage and sexuality. He currently is writing a novel tentatively entitled The Third Eye Is Crying. He was in the 2007 annual theater performance of Sins Invalid and also their artist-in-residence performance in 2011 entitled Residence Alien. He currently completing another poetry book entitled Whispers of Krip Love, Shouts of Krip Revolution. Some of his recent community service work includes being the co-chair of the Persons with Disabilities Ministry at Allen Temple Baptist Church and being the chair of the Lead committee and executive board member of the International Society for Augmentative and Alternative Communication. More of his writings, as well as contact info for Lateef, are available on his website: www.Lateefhmcleod.com Also, here is his Huffington Post blog: http://www.huffingtonpost.com/lateef-mcleod/ Listen to and support Lateef's music here: https://soundcloud.com/lateef-mcleod Support Revolutionary Left Radio and get exclusive bonus content here: https://www.patreon.com/RevLeftRadio Follow us on Twitter @RevLeftRadio Rate and Review us on iTunes to increase our reach! This podcast is officially affiliated with The Nebraska Left Coalition, the Nebraska IWW, the Omaha GDC, and the Marxist Center. Check out Nebraska IWW's new website here: https://www.nebraskaiww.org

In the second episode, we discuss our work with Poor Magazine (poormagazine.org), Media Island International (mediaisland.org), Sins Invalid (sinsinvalid.org), Kohenet (kohenet.com) and the successes of the past couple weeks. --- Support this podcast: https://anchor.fm/success1/support

In this episode: Carceral Ableism and Disability Justice, we explore the ways in which the framework of “carceral ableism” redraws our map of racial capitalism’s archipelago of confinement, and how the liberatory praxis of disability justice works to extend and deepen the abolitionist horizon. Dr. Liat Ben-Moshe, co-editor of Disability Incarcerated: Imprisonment and Disability in the United States and Canada, explains how ableism - the violent material and discursive ordering of bodily and psychic difference through which normative and deviant bodyminds are produced - has been foundational to the development of the carceral state. Leroy Moore, disability justice artist, activist, and co-founder of Krip Hop and Sins Invalid, explains how the disability justice movement emerged as both extension and critique of the disability rights movement. and that disability justice means a complete revolutionizing of our conceptions of embodiment and of our practices of interdependence.

Our guest, Leah Lakshmi Piepzna-Samarasinha, (she/they) is a queer disabled non-binary femme writer and cultural worker of Burger/ Tamil Sri Lankan and Irish/ Roma ascent. Her work has been widely published, most recently in The Deaf Poets Society, Glitter and Grit and Octavia's Brood.  Her memoir, Dirty River: A Queer Femme of Color Dreaming Her Way Home was praised as a “gritty, glorious, multi-layered story of homecoming and self-healing.” Currently a lead artist with the disability justice performance collective Sins Invalid, she teaches, performs and lectures across North America. Primarily, Leah Lakshmi Piepzna-Samarashinha is a self-described weirdo who writes about survivorhood, disability justice, transformative justice, queer femme of color lives and Sri Lankan diaspora while sitting in her room. Well. . . perhaps we will get some “weirdo” crip conversation when guest Leah Lakshmi teams up with Pushing Limits producer Eddie Ytuarte for this half hour interview. The post Leah Lakshmi Piepzna-Samarasinha appeared first on KPFA.

The vast majority of care recipients are exclusively receiving unpaid care from a family member, friend, or neighbor. The rest receive a combination of family care and paid assistance, or exclusively paid formal care. Whether you're a paid home care provider, or rely on personal assistance to meet your daily needs, or a family member caring for a loved one, the nature of the working relationship depends on mutual respect and dignity. On this edition of Making Contact, we'll explore the dynamic and complex relationship of care receiving and giving. Featuring: Camille Christian, home care provider and SEIU member; Brenda Jackson, home care provider and SEIU member;  Patty Berne, co-founder and director, Sins Invalid; Jessica Lehman, executive director, San Francisco Senior and Disability Action; Kenzi Robi, president, San Francisco IHSS (In Home Supportive Services) Public Authority Governing Body; Rachel Stewart,  is a queer disabled woman who is passionate about disability and employment issues; Alana Theriault, disability benefits counselor in Berkeley, California; Ingrid Tischer, director of development, Disability Rights Education & Defense Fund (DREDF);  and Alta Mae Stevens, in-home caregiver. Credits Host: Laura Flynn Producers: Laura Flynn, Monica Lopez, and  Jasmin Lopez Contributing  Producers: Alice Wong and Stephanie Guyer-Stevens Executive Director: Lisa Rudman Web Editor: Kwan Booth Photo Credits: Alice Wong Stephanie Guyer-Stevens Music Credit: Dexter Britain: The Time To Run (Finale) Gillicuddy: Adventure, Darling Steve Combs: March Jason Shaw: Running Waters Jared C. Balogh: BRICK BY BRICK DAY BY DAY Jared C. Balogh: INCREMENTS TOWARDS SERENITY  Nheap: Crossings Cherly KaCherly: The Hungry Garden Trio Metrik: Vogelperspektive Kevin MacLeod: Faster Does It Resources: UCSF: UCSF Study Projects Need for 2.5M More Long-Term Care Workers by 2030 SEIU: Longterm Care Workers Disability Rights Education & Defense Fund Disability Visibility Project Hand in Hand: The Domestic Employers Network National Disability Leadership Alliance Senior and Disability Action Sins Invalid San Francisco In Home Supportive Services Public Authority Family Caregiver Alliance Segment Descriptions: Choreography of Care Community Storytelling Fellow, Alice Wong asks, how do people with disabilities who rely on personal assistance negotiate their relationships with the people that assist them? And how does that inform their sense of independence or interdependence with others? In this next story from the San Francisco Bay Area, Wong searches for answers. http://www.prx.org/pieces/176039-choreography-of-care A Lifetime of Caregiving: Mom and Uncle Harold Most often family members are the ones that step up and provide care when a parent or loved one needs it. According to the Family Caregiver Alliance, 78 percent of care beneficiaries receive assistance from a family member, friend, or neighbor. Alta Mae Stevens is 87 years old. From the moment she married she's been caring for one person or another. Her daughter Stephanie Guyer-Stevens talks to her about what a lifetime of caregiving has meant to her. http://www.radioproject.org/sound/2016/MakingCon_160413_a_lifetime_of_caregiving.mp3 http://www.prx.org/pieces/176040-a-lifetime-of-caregiving-mom-and-uncle-harold The post Caring Relationships: Negotiating Meaning and Maintaining Dignity ENCORE appeared first on KPFA.

In this episode, we talk with Angela Carter about her research and lived experience with disability justice and crip theory. Angela cites numerous artists, academics and activists who do amazing intersectional work--so grab your notepad! We also chat about how disability justice intersects with classroom access and protest culture. And, as always, a bunch of white dudes are ruining our dinner party. ** Mercury Retrograde note: This episode was recorded with two people who had the flu, and a bunch of mysterious moments where our connection sounded less like 2017 and more like a landline phone conversation in 1964. It is 100% the power of Mercury Retrograde for which we have no control. Besos! ** Intro: "Top Floor" by Grrrl Prty Outro: "Skeleton Key" by Dessa Spliced in song: "Rise Up with Fists" by Jenny Lewis and the Watson Twins Episode art by Sins Invalid & Micah Bazant *** Subscribe on iTunes & leave a review! Follow us on Instagram! And Facebook! And Twitter! Check out our Feminist Killjoys, PhD Mixtape on Spotify! Have some extra dollars and want to support feminist media-makers? Consider donating to our Patreon or as a one-time thing at our website. And of course, feel free to email Melody back in 2004 at fkj.phd@gmail.com

We're high on poetry this week… stories of disabled people told to the beat of the heart. Leroy F. Moore Jr. And, we're focusing on black and brown people with disabilities because we're hosting Leroy F. Moore Jr., and his new book, Black Kripple Delivers Poetry and Lyrics.  Listen in as we follow the founder of Krip Hop Nation into a discussion of history, police brutality and the life of a black activist with a disability. Leroy Moore is the co-founder of Sins Invalid, a disability performance project, he writes the “illin n chillin” column at Poor Magazine, and he's put out two poetry cds. Here's just a few of his other projects: While we are in the studio with you, Leroy will be out on the streets leading the Stolen Land/Hoarded Resources Redistribution, Decolonization & Community Reparations Tour in Oakland, California. “As we humbly and peacefully walk into “wealthy” neighborhoods across the “U.S.”, we will be offering land and stolen resource hoarders a chance to begin the very serious work of Decolonization by redistributing one or more of their hoarded and bordered stolen indigenous territory, buildings, homes, stocks, bonds, cash or trust funds to landless and indigenous people in the form of what we call community reparations.” In early June you can find Leroy Moore in L.A. for the opening of Lynn Manning's play, IT'S A KRIP HOP NATION (where are my crippled homies at!)  Playing June 3, 4, 10 and 11, at the Rosenthal Theater in L.A. Late this year, Leroy Moore will be touring South Africa with Simon Manda Editor and Co-Founder of THISABILITY Newspaper. “November 2016 to December 2016, Disability Month in South Africa, Krip Hop will traveling to the major cities of South Africa to film, record and write on the voices to give a multimedia reflection of what the situation is on the ground as well as engage stakeholders on the needs of persons with disabilities in the creative space.” The post Black Kripple Delivers Poetry and Lyrics: Leroy F. Moore appeared first on KPFA.

Preeti Shekar talks to  Sandra Sandoval from San Francisco Women Against Rape about their annual ” Walk Against Rape” event, a walk to empower survivors,  and their friends and family to break the silence and declare San Francisco as a  sexual violence free zone.   Lisa Dettmer talks to Issac Lev Szmonko from the Catalyst Project and Patty Berne from Sins Invalid about their  talk on April 19th on Visionary politics to imagine and create a world organized and operated by values of cooperation, equity, interdependence, and liberation featuring three amazing women activists, PATTY BERNE, of Sins Invalid, CARLA MARIA PÉREZ, from Movement Generation and INGRID CHAPMAN,  from Alabama Coalition for Immigrant Justice.   And we talk to Ashara Ekundayo from the Impact Hub about their “Women in Impact” series event on April 17th featuring geographer Nikky Finney and poet Carolyn Finney The post Womens Magazine – April 13, 2015 appeared first on KPFA.

Fund Drive Special the performance group Sins Invalid, make “an unshamed claim to beauty in the face of invisibility.”  Co-founder and filmmaker, Patty Berne, brings their new movie, “Sins Invalid.” The post Sins Invalid, The Movie appeared first on KPFA.

On this episode of "HASH IT OUT With Jane," I had the awesome opportunity to chat with Patty Berne, co-founder of Sins Invalid. Patty and I have been trying to connect for about a year now and it was absolutely worth the wait because now, I get to help promote the upcoming Sins Invalid documentary!

Take a good look in the mirror.  Do you feel pride in what you see? Beauty in the face of invisibility is the theme of this week's Pushing Limits.  On Friday, October 30th on Pushing Limits, Leah Gardner will interview Patricia Berne and Nomy Lamm from a groundbreaking organization called Sins Invalid.  This troupe of artists and performers use storytelling, music and dance to demonstrate that disabled bodies are beautiful.  Artistic director Patricia Berne and performer Nomy Lamm will discuss their work with Sins Invalid as well as breaking down the barriers of shame and fear to create beauty.   The post Pushing Limits – October 30, 2009 appeared first on KPFA.

Halifu Osumare, Ph.D., Fullbright Scholar, Associate Professor, African American & African Studies at UC Davis; Traci Bartlow, dancer, choreographer, host of the Oakland Hip Hop Dance Institute No. 1, at East Side Arts Alliance at 2277 International Blvd., Oakland, 94607, $10 youth/$25 adults, (510) 533-6629; Kathleen Ann Thompson's "See Me! Hear Me!" is Sept. 25, 7:30 p.m., Sept. 27, 8 p.m. Tickets are $10.00 general admission. Call (510) 568-3314. Sins Invalid with Leroy Franklin Moore Jr., co-founder and community relations director. Leroy was also a poet, journalist, community activist,feminist and consultant on race and the last 13 years. Patty Berne, co-founder and director of Sins Invalid. Her background includes advocacy for immigrants who seek asylum due to war and torture, and within the Haitian Diaspora.