Podcasts about Disability justice

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Best podcasts about Disability justice

Latest podcast episodes about Disability justice

Down to the Struts
Disability and Punishment with Professor Jamelia Morgan

Down to the Struts

Play Episode Listen Later May 27, 2025 28:37


This week, Qudsiya speaks with Professor Jamelia Morgan, an award-winning and acclaimed scholar and teacher at the Northwestern Pritzker School of Law, where she also directs the Center for Racial and Disability Justice. Professor Morgan's work focuses on the intersection of race, gender, disability, and criminal law and punishment. Qudsiya and Jamelia talked about her personal path to studying these issues, the particular harms that people of color with disabilities face when it comes to policing and mass incarceration, and her transformative vision for a world that prioritizes justice and inclusion over violence and punishment.--Let us know what you think with a comment or review!Visit our website⁠ ⁠for⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ transcripts⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Subscribe to Qudsiya's Substack, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Getting Down To It⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Support the team behind the podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠with a donation⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Weird Darkness: Stories of the Paranormal, Supernatural, Legends, Lore, Mysterious, Macabre, Unsolved
SHE JUST WANTED FRIENDS, THEY KILLED HER INSTEAD: The Betrayal, Murder and Injustice of Mary Collins

Weird Darkness: Stories of the Paranormal, Supernatural, Legends, Lore, Mysterious, Macabre, Unsolved

Play Episode Listen Later May 14, 2025 57:19


She trusted the wrong people — and after her brutal murder, the justice system betrayed her all over again.MARY'S VOICE Website: https://justiceformarysantina.comMARY'S VOICE Facebook Group: https://www.facebook.com/groups/2718704181695998Join the Darkness Syndicate: https://weirddarkness.com/syndicateDISCLAIMER: Ads heard during the podcast that are not in my voice are placed by third party agencies outside of my control and should not imply an endorsement by Weird Darkness or myself. *** Stories and content in Weird Darkness can be disturbing for some listeners and intended for mature audiences only. Parental discretion is strongly advised.IN THIS EPISODE: A pale-faced figure in a cape has haunted a quiet Wisconsin town for decades — vanishing without a trace, but never from memory. We'll look at the legend of the Mineral Point Vampire. *** Navy radar specialists witness four mysterious craft emerge from the ocean depths and vanish at impossible speeds, adding weight to a startling theory: what if intelligent beings from Venus colonized Earth's oceans long ago without our knowledge? It's an interesting if not far-out theory. *** They're meant to be places of privacy, but in these haunted rooms, something unseen is always watching… and it never leaves. And that idea is even more disconcerting when you find out that you're being watched by a ghostly entity… while you're using the bathroom. *** An innocent young woman placed her trust in the wrong hands — what happened next would horrify even the most hardened investigators. It's the tragic and horrifying true story of Mary Collins.CHAPTERS & TIME STAMPS (All Times Approximate)…00:00:00.000 = Lead-In00:02:00.023 = Show Open00:03:56.591 = She Just Wanted Friends: The Mary Collins Story00:21:44.683 = From Mines To Monsters To Mineral Point: One-Stop Shopping For Vampires, Ghosts & Goblins00:35:44.216 = Ancient Guardians of the Deep: The Venusian Ocean Civilization Theory00:46:47.347 = Porcelain Portals of the Paranormal: Haunted Bathrooms00:56:02.303 = Show CloseSOURCES AND RESOURCES FROM THE EPISODE…BOOK: “The W-Files” by Jay Rath: https://amzn.to/458kQVZ“SHE JUST WANTED FRIENDS: The Mary Collins Story”: https://medium.com/@TheCrimeChronicles./how-mary-collins-was-stabbed-133-times-6cc490d885ac,https://www.charlotteobserver.com/news/local/crime/article276120786.html,https://medium.com/@crimedesk/betrayed-by-trust-the-tragic-murder-of-mary-collins-174207ec4792,https://www.youtube.com/watch?v=FZJXiOeZa-o, https://www.youtube.com/watch?v=xiTSDt7-X9E,https://www.youtube.com/watch?v=mckGn-yHnWo, https://lostsoulsofamerica.wordpress.com/2022/03/23/murdered-in-north-carolina-the-case-of-mary-collins%EF%BF%BC/, https://discover.hubpages.com/politics/she-just-wanted-friends-the-tragic-murder-of-mary-collins“ANCIENT GUARDIANS OF THE DEEP: The Venusian Ocean Civilization Theory”: https://anomalien.com/new-theory-ufos-belong-to-aliens-from-venus-who-live-in-the-oceans/, https://www.8newsnow.com/investigators/navy-sailor-recounts-ufo-sighting-off-california-coast/, https://anomalien.com/new-us-military-video-released-of-group-of-ufos-taking-off-from-ocean/, https://anomalien.com/uss-jackson-radar-specialist-uap-emerged-from-the-ocean/“FROM MINES, TO MONSTERS, TO MINERAL POINT: One-Stop Shopping for Vampires, Ghosts, and Goblins”: https://www.youtube.com/watch?v=rB5u8OfSS_Y, https://www.ranker.com/list/mineral-point-vampire/april-a-taylor,https://www.wisconsinology.com/the-weird/the-mineral-point-vampire,https://authorlyngibson.wordpress.com/2013/08/23/the-vampire-of-mineral-point/, https://www.youtube.com/watch?v=MpsG8lJRpJE, https://driftlesstimesmedia.com/2024/05/05/mineral-point-vampire-wisconsin-folklore/“PORCELAIN PORTALS TO THE PARANORMAL: Haunted Bathrooms”: https://www.ranker.com/list/most-haunted-bathrooms/patrick-thornton=====(Over time links seen above may become invalid, disappear, or have different content. I always make sure to give authors credit for the material I use whenever possible. If I somehow overlooked doing so for a story, or if a credit is incorrect, please let me know and I will rectify it in these show notes immediately. Some links included above may benefit me financially through qualifying purchases.)= = = = ="I have come into the world as a light, so that no one who believes in me should stay in darkness." — John 12:46= = = = =WeirdDarkness® is a registered trademark. Copyright ©2025, Weird Darkness.=====Originally aired: May 13, 2025EPISODE PAGE at WeirdDarkness.com (includes list of sources): https://weirddarkness.com/MaryCollins

Bethany UCC
25.05.11. Sermon. Sanctuary: Dream Bigger

Bethany UCC

Play Episode Listen Later May 14, 2025 13:46


We're focusing on Disability Justice this month at Bethany. In her sermon this week, Pastor Rebecca reflects on the ways churches and communities often ask 'how can you fit into how we do things' rather than asking 'how can we do things in ways that include the most people possible?'

Speak Up
Neurodiversity affirming practice and disability justice S7E15

Speak Up

Play Episode Listen Later May 14, 2025 51:32


In this week's episode, Professor Betty Yu of San Francisco State University provides a brief overview of the workshop on conversational analysis that she will co-present with Dr Vishnu Nair at the SPA Conference 2025. In this unscripted conversation she reflects on the nature of neurodiversity-affirming practice, whose experiences and communication are centred in society, and the role that speech pathology plays in maintaining the status quo or contributing to disability justice. Resources: Kohnert, K., Yim, D., Nett, K., Kan, P.F., Duran, L. (2005). Intervention with linguistically diverse preschool children: A focus on developing home language(s). Language, Speech, and Hearing in School (36) 3. 251-263. https://doi.org/10.1044/0161-1461(2005/025) Yu, B., Sterponi, L. (2023). Toward neurodiversity: How conversation analysis can contribute to a new approach to social communication assessment. Language, Speech, and Hearing in School (1) 54. 27-41. https://doi.org/10.1044/2022_LSHSS-22-00041 SPA Resources: Speak Up S7E13: Adopting a decolonial vision for the profession https://soundcloud.com/speechpathologyaustralia/adopting-a-decolonial-vision-for-the-profession-s7e13 Speak Up S7E7: Neurodiverse safe work initiative https://soundcloud.com/speechpathologyaustralia/neurodiverse-safe-work-initiative-s7e07 Speak Up S5E36: Stutter-affirming approaches & positive stuttering identity https://soundcloud.com/speechpathologyaustralia/stutter-affirming-approaches-and-positive-stuttering-identity-s05e36 Speak Up S5E9: Translanguaging and linguistic justice https://soundcloud.com/speechpathologyaustralia/s05e09-final Speech Pathology Australia acknowledge the Traditional Custodians of lands, seas and waters throughout Australia, and pay respect to Elders past and present. We recognise that the health and social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples are grounded in continued connection to culture, country, language and community and acknowledge that sovereignty was never ceded. Free access to transcripts for podcast episodes are available via the SPA Learning Hub (https://learninghub.speechpathologyaustralia.org.au/), you will need to sign in or create an account. For more information, please see our Bio or for further enquiries, email speakuppodcast@speechpathologyaustralia.org.au Disclaimer: © (2025) The Speech Pathology Association of Australia Limited. All rights reserved. Important Notice, Please read: The views expressed in this presentation and reproduced in these materials are not necessarily the views of, or endorsed by, The Speech Pathology Association of Australia Limited (“the Association”). The Association makes no warranty or representation in relation to the content, currency or accuracy of any of the materials comprised in this recording. The Association expressly disclaims any and all liability (including liability for negligence) in respect of use of these materials and the information contained within them. The Association recommends you seek independent professional advice prior to making any decision involving matters outlined in this recording including in any of the materials referred to or otherwise incorporated into this recording. Except as otherwise stated, copyright and all other intellectual property rights comprised in the presentation and these materials, remain the exclusive property of the Association. Except with the Association's prior written approval you must not, in whole or part, reproduce, modify, adapt, distribute, publish or electronically communicate (including by online means) this recording or any of these materials.

rabble radio
Fatima Adam on disability justice and why COVID is still a threat

rabble radio

Play Episode Listen Later May 9, 2025 30:01


As of April 2025, COVID-19 has claimed the lives of at least seven million people globally. The true toll is likely even higher, as many countries have stopped reporting reliable data. Without clear data, it can feel like the pandemic is behind us—but that perception is far from reality. For disabled people and those living with long COVID, the crisis is ongoing. COVID remains a serious, disabling, and deadly threat. This week on rabble radio, rabble.ca's Jack Layton Journalism for Change fellow Ashleigh-Rae Thomas spoke with Fatima Adam about what COVID realism is and how it's connected to disability justice.  Links mentioned in this interview:  How To Talk To Your Loved Ones About Covid Crip Crash Course by Sins Invalid I Don't Know How To Explain To You That You Should Care About Other People (Kayla Chadwick, Huffpost, 2017)  Relevant episodes to cue up after this one!  Disability justice is the antithesis of capitalism on rabble radio  What does disability justice look like in the workplace? on rabble radio  About our guest  Fatima Adam (she/her) is a Toronto based writer, arts administrator, and facilitator, with a focus on disability justice and COVID realism. If you like the show please consider subscribing on Apple Podcasts, Spotify, YouTube or wherever you find your podcasts. And please, rate, review, share rabble radio with your friends — it takes two seconds to support independent media like rabble. Follow us on social media across channels @rabbleca.

Building Abundant Success!!© with Sabrina-Marie
Episode 2586: Dara Baldwin ~Justice Author, Activist Taks about Her Book about Being a Problem, Surviving Racism & the Disability Rights Movement

Building Abundant Success!!© with Sabrina-Marie

Play Episode Listen Later Apr 30, 2025 47:12


CDR, NDRN, NLIHCDisability Right is a Civil Right BUT has "ISM" Issues I am ALL Too Familiar with I  am Saddened to say. But Hope for Positive Ways Foward.Dara Baldwin is a debut author with the book To Be A Problem: A Black Woman's Survival in the Racist Disability Rights Movement published by Beacon Press and released July 2024 in coordination with the 34th Anniversary of the Americans with Disabilities Act of 1990 (ADA). She is a strategist, author, activist, instructor, project manager, connector, changemaker and policy wonk.Born in Torrejon, Spain to parents involved in serving their country, the desire to serve has continued through her education and current career journey. She is an activist, scholar and author. She started her first career in Healthcare Administration in executive positions. In 2004 she changed her career to public policy in the social justice/equity realm of work. Currently Ms. Baldwin the founder and Principal of DMadrina, LLC. A consultant company working with organizations around the world in the area of social impact, political strategy and policy agendas in multiple issue areas, with an emphasis on disability justice. She is also an adjunct professor at McCourt School of Public Policy and McDonough School of Business at Georgetown University teaching disability justice, equity and policy as well as Introduction to Advocacy and policy.She has held senior level positions in federal policy at multiple organizations. She was the Director of National Policy for the Center for Disability Rights, Inc. (CDR), Senior Policy Analyst at National Disability Rights Network (NDRN). She works within the Disability Justice movement and with an intentional strategy to end racism and systems of oppression.She is a fellow in the Women Transcending Collecti

Thursday Breakfast
Palestinian Workers' Struggle, F*** Work, Workers' Rights in the Care Sector, International Labour Solidarity for Mask Off Maersk

Thursday Breakfast

Play Episode Listen Later Apr 30, 2025


Acknowledgement of Country//Headlines:Protest action ahead of the electionAustralian-made weapons components reaching Israel via third countriesExperts urge an overhaul of Victoria Police oversight systemNew report reveals evictions of Victorian renters due to unpaid rent have increased to five times the 2021 rateMohammed Aruri, a member of the executive of the General Union of Palestinian Workers, joins us from Ramallah to speak about Palestinian workers' struggle across the West Bank and Gaza, conditions since October 2023, and connections with the international labour movement. You can read Palestinian trade unions' May Day 2025 statement - 'No Labor For Genocide - No Complicity With Apartheid', to which GUPW is a signatory - on the BDS Movement's website.//We hear Pauline Vetuna and Leilani (Lay-lani) Fuimaono's segment for 3CR's Disability Day 2022 ''F**K Work (EFF Work)''. They speak on centering disabled REST in labour rights and movements for liberation. In this clip, they speak on the joys of Indigneous anti-capitalist futures, and rest being central to Disability Justice. You can listen back to the whole segment on https://www.3cr.org.au/disabilityday2022//Teresa Hetherington is a community-based aged care worker, a union activist and United Workers Union Aged Care Delegate. Today, Teresa joins us to talk about rights in feminised workforces such as care and support work for May Day. The care sector, such as aged care, home care, disability support and child care, is a women dominated industry and includes a high number of workers with migrant backgrounds. Despite the importance of this work that provides critical support to our communities, it is work that remains systematically undervalued. In our discussion this morning, Teresa will bring us up to date on current working conditions, the fight for fair pay and more.//Jeanine Hourani, an organiser with the Palestinian Youth Movement and member of the Mask Off Maersk committee, discusses the role of international worker solidarity in the Mask Off Maersk campaign. This campaign is enforcing a people's arms embargo on Israel as it continues its genocide of Palestinians in Gaza, with solidarity actions including significant trade union participation underway at logistics chokepoints worldwide. Find out more about the campaign, including how to take action from wherever you are, here.//

Talk Architecture
A Commentary on - Designing for Disability Justice [Part 1]

Talk Architecture

Play Episode Listen Later Apr 19, 2025 24:59


Send us a textA new series on the critical model of disability, where under the 'architecture and disability' umbrella, using readings and commentaries, we analyse the article by Matthew Allen (2021) in Part 1 episode.Designing for Disability Justice: On the need to take a variety of human bodies into account© 2025 Talk Architecture, Author: Naziaty Mohd Yaacob. Image of a street lamp by the author.Graphite ProGRAPHITE is a platform for creatives and trailblazers aiming to elevate their work....Listen on: Apple Podcasts SpotifySupport the showDo subscribe for premium content and special features which will help to support and sustain Talk Architecture podcast on a more in-depth explanation on design thesis and processes. These special commentaries and ‘how to' explanations are valuable insights and knowledge not found elsewhere!

Talk Architecture
A Commentary on - Designing for Disability Justice [Part 2]

Talk Architecture

Play Episode Listen Later Apr 19, 2025 31:16


Send us a textA new series on the critical model of disability, where under the 'architecture and disability' umbrella, using readings and commentaries, we analyse the article by Matthew Allen (2021) in Part 2 episode.Designing for Disability Justice: On the need to take a variety of human bodies into account© 2025 Talk Architecture, Author: Naziaty Mohd Yaacob. Image of a hospital foyer by the author.Graphite ProGRAPHITE is a platform for creatives and trailblazers aiming to elevate their work....Listen on: Apple Podcasts SpotifySupport the showDo subscribe for premium content and special features which will help to support and sustain Talk Architecture podcast on a more in-depth explanation on design thesis and processes. These special commentaries and ‘how to' explanations are valuable insights and knowledge not found elsewhere!

Talk Architecture
A Commentary on - Designing for Disability Justice [Part 3]

Talk Architecture

Play Episode Listen Later Apr 19, 2025 26:29


Send us a textA new series on the critical model of disability, where under the 'architecture and disability' umbrella, using readings and commentaries, we analyse the article by Matthew Allen (2021) in Part 3 and concluding episode.Designing for Disability Justice: On the need to take a variety of human bodies into account© 2025 Talk Architecture, Author: Naziaty Mohd Yaacob. Image of a street corner by the author.Graphite ProGRAPHITE is a platform for creatives and trailblazers aiming to elevate their work....Listen on: Apple Podcasts SpotifySupport the showDo subscribe for premium content and special features which will help to support and sustain Talk Architecture podcast on a more in-depth explanation on design thesis and processes. These special commentaries and ‘how to' explanations are valuable insights and knowledge not found elsewhere!

5 Things In 15 Minutes The Podcast: Bringing Good Vibes to DEI

Michael Bach (he/him), Author, Speaker, IDEA Thought Leader, and I recap the latest 5 Things (good vibes in DEI) in just 15 minutes. This week, our conversation is about good vibes globally, signing on to equity, game-changing inclusion, and more!Here are this week's good vibes:Global Inclusion? Still Très Chic.Streaming Gets Sign-Savvy, FinallyTag, You're IncludedFrom Shelter to SisterhoodParental Leave That Walks the TalkGood Vibes to Go: Bernadette's GVTG: If you're into the apocalypse (or even if you're not), check out the ASL version of The Last of Us on HBO Max. It looks to be a very cool example of access done right. Michael's GVTG: Do something for your own mental health, whether that's just getting out into the sun, doing some yoga, watching a TV show, or just sitting and having a nice drink with friends. Whatever you need to do, make sure you're taking care of your mental health. Read the Stories.Connect with Michael Bach.Subscribe to the 5 Things newsletter.Watch the show on YouTube. Join thousands of readers by subscribing to the 5 Things newsletter. Enjoy some good vibes in DEI every Saturday morning. https://5thingsdei.com/

The Autistic Culture Podcast
Monster High Is Autistic (Episode 117)

The Autistic Culture Podcast

Play Episode Listen Later Mar 25, 2025 33:45


An episode that's spooky and spectacular! Here's what's in store for today's episode: * Today's episode is all about the Monster High franchise! It's a perfect topic since, as autistic people, we often relate to monsters—feeling different and set apart, just like they do.* Our special guest for this episode is Tiffany Hammond from the Fidgets and Fries Instagram account! An autistic mother and advocate, her activism is deeply rooted in intersectionality and challenging mainstream perceptions of autism.* We dive into all things advocacy, from the complexities of the “autism mom” narrative to the unique challenges of navigating the advocacy space as a Black autistic person.* We discuss the realities of autistic individuals encountering law enforcement and the often terrifying challenges that come with these interactions. From misunderstandings and sensory overload to the potential for dangerous outcomes, we explore why these situations can be so distressing and what needs to change to make them safer.* Tiffany also shares her experience teaching her Black autistic children about race, highlighting the unique challenges and nuances that come with discussing identity, privilege, and discrimination with neurodivergent kids.* Additionally, Tiffany then shares her experience consulting with Mattel on Twyla Boogeyman, the first canonically autistic Monster High character. She discusses the process of ensuring authentic representation, the importance of neurodivergent voices in media, and what this milestone means for autistic fans.* From body language to stim objects, every detail was carefully considered to ensure an authentic and meaningful portrayal of autism in Twyla's character.* Finally, we explore the many forms of autism representation in media and the importance of diverse portrayals. While no single character can represent every autistic person, authentic representation can still make a powerful impact—helping even one autistic individual feel seen and understood.“We [autistic folks] tend to have an affinity for monsters because we are often misunderstood. We are often persecuted, villainized, & made out to be the bad guy because we are different. So, we often want to extend courtesy to monsters, because we say, ‘that beast surely is misunderstood. Perhaps there's good things there.'” - Matt"“That's a big problem with the world in general, because a lot of the world, especially neurotypical people, operate with sound bytes and hashtags and making things as simplistic as possible. But when you have the complex intersectionality of racism and colonialism and ableism and all this stuff contributing to make a real, massive threat, a danger to your existence, it's so much bigger than that.” - Matt“She [Twyla Boogeyman] represents one kind of representation of what autism can be. This is just an invitation for the audience to learn more, for you to see that there is disabled representation, even in animated, made-up shows.” - Tiffany Hammond Did you enjoy this episode? We explored the impact of autism representation in media, from Monster High's canonically autistic character to the power of seeing ourselves reflected in pop culture. Tune in as we dive into how these portrayals shape our identities, creativity, and connections with others. Share your thoughts in the comments and use #AutisticCultureCatch to connect with us and share your experiences!Show Notes:Tiffany Hammond (she/her) is the voice behind the Fidgets and Fries platform. She is an Autistic mother, advocate, and storyteller who uses her personal experiences with Autism and parenting two Autistic boys to guide others on their journey. Tiffany has a Masters in Developmental Psychology and spends her time teaching, coaching, and mentoring others in Disability Justice issues. Her activism is rooted in challenging the current perception of Autism as a lifelong burden, cultivating a community that explores the concept of Intersectionality and inspiring thought leaders through storytelling, education, and critical discourse. Tiffany was born and raised in Texas and grew up on deep dish pie and stories from her grandmother. She is a dreamer by day and a cereal killer at night. You can usually find Tiffany writing in the light of the moon or thinking about what to write in the light of the day. When she isn't writing, she is building epic pillow forts with her two sons or going on long road trips with her family.https://en.wikipedia.org/wiki/Monster_Highhttps://www.instagram.com/fidgets.and.fries/https://bsky.app/profile/fidgetsandfries.bsky.socialSPELLRBOARD APP:Listener Julie Kazaks wanted to share that my oldest son released an app in the AppStore- a digital letterboard made for people who aren't able to reliably use their voice.He created this app originally for his brother who has autism and is non speaking.I am helping him spread the word to help give a voice - everyone deserves to be heard.If you'd like to learn more and watch a demo- please check out the website.https://www.spellrboard.comShow notes:https://www.amazon.com/Day-No-Words-Tiffany-Hammond/dp/1736949799Related Episodes:Beauty and the Beast is AutisticXMen are AutisticFollow us on InstagramFind us on Apple Podcasts and SpotifyLearn more about Matt at Matt Lowry, LPPJoin Matt's Autistic Connections Facebook GroupLearn more about Angela at AngelaKingdon.com Angela's social media: Twitter and TikTokOur Autism-affirming merch shop This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit www.autisticculturepodcast.com/subscribe

Meditations With Desi
Hope without Gaslighting: A Meditation for Collective Wellness

Meditations With Desi

Play Episode Listen Later Mar 25, 2025 18:45


This grounding mediation invites you into a more honest, collective vision of hope--one that doesn't lie to you or ask you to ignroee your pain. Rooted in truth, breath, and somatic awareness, this epiesode offers a calm space to rest, feel, and begin again.    What does it mean to have hope without gaslighting yourself?  In this Mediation, Desi Hall--founder of 3rd Ave. Wellness--guides you through a practice that names what's real while he;ping you return to your body and breath. This is not hope rooted in false positivity or toxic resilience. It's hope rooted in clarity, grief, and resistance. Whether you're feeling overwhemled by the news, struggling to keep going, or just in need of a pause that doesn't ask you to shrink your pain-- this episode is for you. This mediation is especially for: Black women navigating burnout and mounting pressure at work Disabled folks who deserve access to collective care Queer and trans people seeking spiritual grounding Anyone who is tired of being told "it's not that bad." Collective care starts here. Let this be your reset. https://3rdavewellness.com  

Start the Week
Lockdown and the Covid generation

Start the Week

Play Episode Listen Later Mar 17, 2025 42:16


Five years ago, in response to the Covid pandemic, the government mandated a series of lockdowns, with the closure of schools and businesses and social distancing. Tom Sutcliffe is joined by guests to discuss how such a monumental event could have had affected brain cognition, and whether there have been lasting effects on young people. But he also hears tales of resilience among neurodiverse communities.The neuroscientist Daniel Yon looks at the cognitive impact of unprecedented events in his forthcoming book, A Trick of the Mind - How the Brain Invents Your Reality (published, June 2025). He explains how times of instability and uncertainty upset the brain's ability to understand the world, and make people more susceptible to conspiracy theories. The Covid-19 Social Study was the largest study exploring the psychological and social effects of the pandemic on the UK population. Dr Daisy Fancourt, Associate Professor of Psychobiology and Epidemiology at University College London explains what they learnt about the impact of social isolation. The developmental psychologist at Cambridge University, Professor Claire Hughes, has looked more closely at families with young children, across six different countries, with very different lockdown policies. Although there was a link between family stress related to the pandemic and child problem behaviours, more recent work questions whether the lockdown has had longer term effects. The artist and zinemaker Dr Lea Cooper has co-curated a new exhibition at the Wellcome Collection, Zines Forever! DIY Publications and Disability Justice (until 14th September). Zines are self-published works, and Dr Cooper says several on display were created during lockdown, and showcase personal stories of resistance and self-expression.Producer: Katy HickmanPart of BBC Radio 4's series of programmes exploring Lockdown's Legacy

Traipsin' Global on Wheels Podcast Hour
Breaking Barriers: Human Rights, Disability Justice, and Advocacy with Jamie Todd-Gher

Traipsin' Global on Wheels Podcast Hour

Play Episode Listen Later Mar 4, 2025 32:06


In this powerful episode of Traipsin' Global on Wheels, human rights lawyer Jamie Todd-Gher shares her two-decade journey advocating for marginalized communities. From working with the UN and Amnesty International to championing gender equality, disability rights, and reproductive justice, Jamie delves into the complexities of human rights advocacy. She reflects on pivotal moments, including overcoming backlash on controversial issues, the intersection of disability and reproductive rights, and the urgent need for cross-movement collaboration.Jamie discusses the misconceptions surrounding disability and sexuality, emphasizing the importance of inclusive policies in workplaces and beyond. She also offers insights into self-care while tackling emotionally taxing work and the role of grassroots efforts in fostering lasting change. With wisdom drawn from mentors, global advocates, and her personal experiences, Jamie inspires young changemakers to stay the course despite challenges.This episode is a compelling call to action—encouraging listeners to reflect, engage, and push for a world where dignity, equity, and accessibility are fundamental rights for all. Tune in for a thought-provoking conversation that will leave you empowered and motivated to drive change.

Always Looking Up
Eliza Orlins On Pushing For Change Within The System

Always Looking Up

Play Episode Listen Later Mar 3, 2025 53:41


For context, this episode was recorded on February 19, 2025. In this week's episode I sat down with Eliza Orlins. Eliza Orlins is a career public defender who has represented close to 4000 people charged with crimes in Manhattan over the last 13+ years. She's an outspoken advocate and can be found raging against injustice on her social media platforms. We discuss the misunderstandings and misrepresentations of the criminal legal system, the ways in which the system and how it is designed impacts those in marginalized communities including persons with disabilities, how she is pushing for change within the system as an advocate and as an activist, and much, much more. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf Follow Eliza: Instagram: @eorlins TikTok: @eorlins Substack: Objection: Everything Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

rabble radio
What does disability justice look like in the workplace?

rabble radio

Play Episode Listen Later Feb 7, 2025 30:01


What does it mean for a workplace to be truly accommodating for all? How can we advocate for more people-first workplaces? Where are governments and companies failing us and how can we better protect each other?  Labour reporter Gabriela Calugay-Casuga sits down with Brad Evoy, the executive director with Disability Justice Network of Ontario to discuss all this and more.  About our guest Brad Evoy is the executive director with Disability Justice Network of Ontario. Brad is a member of the Qalipu Mi'kmaq First Nation and has worked across Ontario and Newfoundland as a governance and community organizing nerd. His experiences as a Disabled person—with Cerebral Palsy and high myopic vision—have helped ground him in community and the interlocking fight for justice. DJNO was founded in 2018 by racialized, disabled community members in Hamilton, Ontario to build a world where disabled people are free to be, able to thrive and grow in community together, and have the power to hold the powerful to account. The Disability Justice Network of Ontario (DJNO) aims to build a just and accessible Ontario, wherein people with disabilities: have personal and political agency; can thrive and foster community; and build the power, capacity, and skills needed to hold people, communities, and institutions responsible for the spaces they create. For more information about DJNO, visit here.  If you like the show please consider subscribing on Apple Podcasts, Spotify, YouTube or wherever you find your podcasts. And please, rate, review, share rabble radio with your friends — it takes two seconds to support independent media like rabble. Follow us on social media across channels @rabbleca.

Always Looking Up
Violet On The Weight Of Words When Said Behind A Podium Or A Desk

Always Looking Up

Play Episode Listen Later Feb 6, 2025 61:21


In this episode I sat down with Violet aka hi its vi. Violet is a disability advocate, filmmaker, and content creator with almost 100 thousand followers on TikTok. Violet's advocacy focuses on the representation of people with dwarfism in the media. For context, we recorded this episode on February 3rd following remarks made by the President and the media about people with dwarfism. This is a conversation unpacking how society perceives, acts toward, and talks about people with dwarfism as well as the relationship between disability organizations and politics. Trigger warning for harmful rhetoric. Relief For Disabled People Impacted By The Los Angeles Fires: Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/ United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/ Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf   Follow Violet: TikTok: @hi.itsvi Instagram: @hello.itsvi Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: alwayslookingup227@gmail.com Read With Me: Goodreads The StoryGraph This episode was edited and produced by Ben Curwin

Teach the Babies w/ Dr. David J. Johns
Disability Justice For All

Teach the Babies w/ Dr. David J. Johns

Play Episode Listen Later Jan 28, 2025 48:18


Ask anyone in DC for recommendations for disability advocates, and they'll likely name Dara Baldwin. She works within the Disability Justice movement to end racism and systems of oppression. She served as the Director of National Policy for the Center for Disability Rights, Inc., and Senior Policy Analyst at National Disability Rights Network.  She has worked on over 25 bills signed into law by five Presidents. She stops by the class to discuss the most important lessons learned in fighting for disability justice for all!Baldwin, Dara. To Be A Problem: A Black Woman's Survival in the Racist Disability Rights (July 2024).Become a supporter of this podcast: https://www.spreaker.com/podcast/teach-the-babies-w-dr-david-j-johns--6173854/support.

Enrichment for the Real World
#102 - Gabrielle Johnson: Disability Justice in Animal Welfare

Enrichment for the Real World

Play Episode Listen Later Jan 27, 2025 81:34 Transcription Available


The animal training industry is typically on board with non-human learners being individuals and meeting those individuals where they are when it comes to training. But what about our human learners? In this episode, Gabrielle Johnson talks about how we can meet our human learners where they are and how to support disability justice in the animal welfare industry. You can find the full episode show notes here. 

The Hopeful Activists' Podcast
Beyond Inclusion: Disability Justice

The Hopeful Activists' Podcast

Play Episode Listen Later Dec 20, 2024 38:42


Abi is joined by researcher-activist Naomi Lawson Jacobs, co-author of the book At the Gates: Disability, Justice and the Churches. Naomi's research tells the stories of disabled people; the stories behind the shocking statistics. Naomi tells Abi about activism led by disabled people, the challenges that disabled Christians face, who and what we should be valuing and the problem with the idea of "inclusion". At The Gates: Disability, Justice and the Churches shares disabled Christians' stories in their own words. These storytellers speak back to a church that has more often told their stories for them, calling for justice for all the disabled Christians who have been left waiting at the church gates.Buy At The Gates: Disability, Justice and the Churches here.Buy The Hopeful Activist book here.

Real-ationship Goals
Special Topics: Disability Justice

Real-ationship Goals

Play Episode Listen Later Dec 18, 2024 30:37


This week on Real-ationship Goals our team discusses Disability Justice, and some of the incredible activists who have dedicated themselves to increasing accessibility and changing the way we talk and think about disability. . . Mónica's Recommendation: Check out content made by disabled content creators and center the voices of folks with disabilities! Access the episode transcript at the link below. https://docs.google.com/document/d/1_2FtqD3viEuMCY0xP-OcOAkuu5rRzxC6OmLuwcJAzms/edit?usp=sharing Advocacy Center Crisis Hotline (254) 752-7233 or (888) 867-7233. Follow us on Instagram at @ACCVC_Prevention to connect with us and for more great content!

The Laura Flanders Show
Maysoon Zayid: Comedy of Resistance, Disability, Difference & Palestine

The Laura Flanders Show

Play Episode Listen Later Dec 12, 2024 29:18


Join Maysoon Zayid as she discusses humor, disability rights, and the resilience of Palestinian identity during a conversation filled with heart and laughter amid conflict.This show is made possible by you!  Our year end goal is to raise $50,000, and we are half way there. To become a member go to https://LauraFlanders.org/donate Thank you for your continued support!Description: Israel's US-backed war on Gaza has been a mass disabling event. Today's guest says we must create a “viable, accessible future” for the disabled Palestinians we have failed. Maysoon Zayid is a comedian, Princeton Fellow, and unapologetic voice for both disability rights and Palestinian identity. A fierce advocate with cerebral palsy, Zaid proves that the most powerful messages often come from unexpected places and are filled with laughter. She's lost tens of thousands of dollars of contracts for her views, she says, but that hasn't stopped her “making funny during a genocide” on social media all year. And she's shown her followers her home village in Palestine — the best place on earth, she says, despite the onslaught of oppression and violence that her people have endured. Maysoon co-founded the New York Arab American Comedy Festival and the Muslim Funny Fest. Her viral Ted Talk, “I Got 99 Problems...Palsy is Just One,” has been translated into 42 languages, and was one of the most popular talks of 2014. She's the author of “Shiny Misfits”, the new graphic novel that tells the story of Bay Ann, a disabled girl and her cat friend that rock star Dave Matthews narrates for the audiobook. In this conversation filled with heart and humor, hear how comedy shines a light on injustice and serves as a voice of resistance. All that, plus a commentary from Laura on human shields.“As a disabled kid, I liked Palestine a lot more than Jersey . . . I was the only visibly disabled kid in my school growing up. But in Palestine there were other disabled kids and disability wasn't shunned. It wasn't mocked, it wasn't bullied. I grew up in a society that very much believed that disability was a natural part of life . . .” - Maysoon Zayid“I've always used comedy to humanize and educate on disability. And this is the moment because the future of Palestine is disabled and between life and death, there's disability. I don't think it's better to be dead than to be disabled. I want us to create a viable, accessible future for this cohort of human beings that we have failed in the present.” - Maysoon ZayidGuest:  Maysoon Zayid: Comedian & Disability Advocate; Author, Shiny MisfitsWatch the broadcast episode cut for time at our YouTube channel and airing on PBS stations across the country  Subscribe to episode notes via Patreon Music In the Middle:  "Purpose Love" by Jhelisa, released on Dorado Records.  And additional music included- "Steppin"  by Podington Bear. Related Laura Flanders Show Episodes:• “The Future is Disabled”: Leah Lakshmi Piepzna-Samarasinha. Watch / Download Podcast and Full Conversation•  Anita Cameron & Keith Jones on The Americans with Disabilities Act: A Civil Rights Milestone With Miles To Go. Watch•  Amanda Seales Takes the Heat: Speaking Out About Gaza & Hollywood. Watch / Download Podcast and Full ConversationRelated Articles and Resources:• “Shiny Misfits” Maysoon's graphic novel and audio version  available from Audible featuring the voice of Dave Matthews, and others.• Maysoon Zayid's Ted Talk• DISCO, a live interactive panel show hosted by Maysoon Zayid coming up February, 2015 at Joe's Pub in New York City. Laura Flanders and Friends Crew: Laura Flanders, along with Sabrina Artel, Jeremiah Cothren, Veronica Delgado, Erika Harley, Janet Hernandez, Jeannie Hopper, Sarah Miller, Nat Needham, David Neuman, and Rory O'Conner. FOLLOW Laura Flanders and FriendsInstagram: https://www.instagram.com/lauraflandersandfriends/Blueky: https://bsky.app/profile/lfandfriends.bsky.socialFacebook: https://www.facebook.com/LauraFlandersAndFriends/Tiktok: https://www.tiktok.com/@lauraflandersandfriendsYouTube: https://www.youtube.com/channel/UCFLRxVeYcB1H7DbuYZQG-lgLinkedin: https://www.linkedin.com/company/lauraflandersandfriendsPatreon: https://www.patreon.com/lauraflandersandfriendsACCESSIBILITY - The broadcast edition of this episode is available with closed captioned by clicking here for our YouTube Channel

The Laura Flanders Show
Full Conversation- Maysoon Zayid: Comedy of Resistance, Disability, Difference & Palestine

The Laura Flanders Show

Play Episode Listen Later Dec 6, 2024 39:10


Description: Israel's US-backed war on Gaza has been a mass disabling event. Today's guest says we must create a “viable, accessible future” for the disabled Palestinians we have failed. Maysoon Zayid is a comedian, Princeton Fellow, and unapologetic voice for both disability rights and Palestinian identity. A fierce advocate with cerebral palsy, Zaid proves that the most powerful messages often come from unexpected places and are filled with laughter. She's lost tens of thousands of dollars of contracts for her views, she says, but that hasn't stopped her “making funny during a genocide” on social media all year. And she's shown her followers her home village in Palestine — the best place on earth, she says, despite the onslaught of oppression and violence that her people have endured. Maysoon co-founded the New York Arab American Comedy Festival and the Muslim Funny Fest. Her viral Ted Talk, “I Got 99 Problems...Palsy is Just One,” has been translated into 42 languages, and was one of the most popular talks of 2014. She's the author of “Shiny Misfits”, the new graphic novel that tells the story of Bay Ann, a disabled girl and her cat friend that rock star Dave Matthews narrates for the audiobook. In this conversation filled with heart and humor, hear how comedy shines a light on injustice and serves as a voice of resistance. All that, plus a commentary from Laura on human shields.“As a disabled kid, I liked Palestine a lot more than Jersey . . . I was the only visibly disabled kid in my school growing up. But in Palestine there were other disabled kids and disability wasn't shunned. It wasn't mocked, it wasn't bullied. I grew up in a society that very much believed that disability was a natural part of life . . .” - Maysoon Zayid“I've always used comedy to humanize and educate on disability. And this is the moment because the future of Palestine is disabled and between life and death, there's disability. I don't think it's better to be dead than to be disabled. I want us to create a viable, accessible future for this cohort of human beings that we have failed in the present.” - Maysoon ZayidGuest:  Maysoon Zayid: Comedian & Disability Advocate; Author, Shiny Misfits RESOURCES:Watch the broadcast episode cut for time at our YouTube channel and airing on PBS stations across the country Related Laura Flanders Show Episodes:• “The Future is Disabled”: Leah Lakshmi Piepzna-Samarasinha. Watch / Download Podcast and Full Conversation•  Anita Cameron & Keith Jones on The Americans with Disabilities Act: A Civil Rights Milestone With Miles To Go. Watch•  Amanda Seales Takes the Heat: Speaking Out About Gaza & Hollywood. Watch / Download Podcast and Full ConversationRelated Articles and Resources:• “Shiny Misfits” Maysoon's graphic novel and audio version  available from Audible featuring the voice of Dave Matthews, and others.• Maysoon Zayid's Ted Talk• DISCO, a live interactive panel show hosted by Maysoon Zayid coming up February, 2015 at Joe's Pub in New York City. Full Episode Notes are located HERE. Laura Flanders and Friends Crew: Laura Flanders, along with Sabrina Artel, Jeremiah Cothren, Veronica Delgado, Erika Harley, Janet Hernandez, Jeannie Hopper, Sarah Miller, Nat Needham, David Neuman, and Rory O'Conner. FOLLOW Laura Flanders and FriendsInstagram: https://www.instagram.com/lauraflandersandfriends/Blueky: https://bsky.app/profile/lfandfriends.bsky.socialFacebook: https://www.facebook.com/LauraFlandersAndFriends/Tiktok: https://www.tiktok.com/@lauraflandersandfriendsYouTube: https://www.youtube.com/channel/UCFLRxVeYcB1H7DbuYZQG-lgLinkedin: https://www.linkedin.com/company/lauraflandersandfriendsPatreon: https://www.patreon.com/lauraflandersandfriendsACCESSIBILITY - The broadcast edition of this episode is available with closed captioned by clicking here for our YouTube Channel

The Dignity Lab
Dignity in Disability with Tess Carichner

The Dignity Lab

Play Episode Listen Later Oct 20, 2024 28:12


Join the dialogue - text your questions, insights, and feedback to The Dignity Lab podcast.This episode of The Dignity Lab features an interview with Tess Carichner, a senior honors nursing student at the University of Michigan who is minoring in disability studies and global health. Tess is the founder of Disability Justice @ Michigan and lead editor of the anthology Accessing Disability Culture. Tess discusses her work in disability health equity and disability justice. She shares her personal experiences growing up in an inter-abled family and her perspective on disability as an identity. The conversation covers various aspects of disability, including visible and invisible disabilities, the importance of dignity in healthcare, and the challenges faced by the disability community.TakeawaysDisability is a dynamic and diverse concept that includes physical disabilities, neurodivergence, and chronic illnesses.Dignity in disability healthcare involves preserving autonomy, self-determination, and recognizing the importance of individuals' needs.Diagnostic overshadowing can lead to healthcare providers dismissing concerns of disabled patients, emphasizing the need for comprehensive primary care.Visible and invisible disabilities present different challenges in terms of disclosure, accommodations, and societal perceptions.Disability justice involves cross-disability solidarity, representation, and challenging ableist systems.The anthology Accessing Disability Culture provides a platform for disabled students to share their experiences and create representation.Intersectionality is crucial in understanding the compounded effects of multiple axes of oppression on disabled individuals.Non-disabled people can contribute to combating ableism by recognizing the humanity of disabled individuals and creating inclusive communitiesExploring what it means to live and lead with dignity at work, in our families, in our communities, and in the world. What is dignity? How can we honor the dignity of others? And how can we repair and reclaim our dignity after harm? Tune in to hear stories about violations of dignity and ways in which we heal, forgive, and make choices about how we show up in a chaotic and fractured world. Hosted by physician and coach Jennifer Griggs.For more information on the podcast, please visit www.thedignitylab.com.For more information on podcast host Dr. Jennifer Griggs, please visit https://jennifergriggs.com/.For additional free resources, including the periodic table of dignity elements, please visit https://jennifergriggs.com/resources/.The Dignity Lab is an affiliate of Bookshop.org and will receive 10% of the purchase price when you click through and make a purchase. This supports our production and hosting costs. Bookshop.org doesn't earn money off bookstore sales, all profits go to independent bookstores. We encourage our listeners to purchase books through Bookshop.org for this reason.

Movement Memos
Keeping Each Other Alive: Mental Health and Collective Survival

Movement Memos

Play Episode Listen Later Oct 10, 2024 87:42


“I've seen a lot of people lashing out at people horizontally, and my gut sense is that sometimes it happens because the folks who are lashing out are definitely super traumatized, in crisis, feel and are really powerless in a lot of ways,” says Disability Justice organizer Leah Lakshmi Piepzna-Samarasinha. In this episode, Kelly talks with Leah and Elliott Fukui, who develops community safety strategies for emotional wellness and safety, about why people are struggling right now, what's keeping people alive and engaged, and what we need to create together to survive these times. You can find a transcript and show notes (including links to resources) here: truthout.org/series/movement-memos/ If you would like to support the show, you can donate here: bit.ly/TODonate If you would like to receive Truthout's newsletter, please sign up: bit.ly/TOnewsletter

West Virginia Morning
A DIY Skatepark, Plus Disability Justice During Hazardous Spills, This West Virginia Morning

West Virginia Morning

Play Episode Listen Later Oct 7, 2024


On this West Virginia Morning, there's no public skatepark in Martinsburg, so locals spent a decade building one from scratch. And they're not alone: Skaters nationwide are adding ramps and rails to abandoned lots, calling them DIY skateparks. Reporter Jack Walker visited the “do-it-yourself” park in Martinsburg. He talked to skaters about the spot, plus... View Article The post A DIY Skatepark, Plus Disability Justice During Hazardous Spills, This West Virginia Morning appeared first on West Virginia Public Broadcasting.

ABCs of Disability Planning
The Autistic People of Color Fund - At the intersections of disability justice, neurodiversity, and racial justice

ABCs of Disability Planning

Play Episode Listen Later Sep 30, 2024 41:20


The Autistic People of Color Fund - At the intersections of disability justice, neurodiversity, and racial justice. The Fund practices redistributive justice and mutual aid by returning and sharing money directly to and with autistic people of color. They provide microgrants to Black, Brown, Native, Asian, and mixed-race people in the autistic community for survival, organizing, leisure, and pleasure. They are committed to the principles of Disability Justice, including leadership by those most impacted, intersectionality, anti-capitalist politics, cross-movement solidarity, interdependence, collective access, and collective liberation. Their work is grounded in the commitment to ending extractive economies and building and sustaining generative economies. Connect to learn more: Website: https://autismandrace.com/ Email: communityfund@autismandrace.com X: #autisticpoc For more information about Eric Jorgensen you can find him here: Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠ Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠ As an Amazon Associate, I earn commissions from qualifying purchases. --- Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support

The LowDOWN: A Down Syndrome Podcast
Down Syndrome in the Era of Climate Change

The LowDOWN: A Down Syndrome Podcast

Play Episode Listen Later Sep 18, 2024 63:59


On Season 10, Episode 2 of The LowDOWN: A Down Syndrome Podcast, Glen Hoos gives us the lowdown on how climate change impacts people with Down syndrome. Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.

The Elephant in the Room
121: Why the social model of disability is key to equitable and inclusive change: Caroline Collier, CEO Inclusion Barnet

The Elephant in the Room

Play Episode Listen Later Sep 12, 2024 29:04


Shownotes:Being an advocate for equity and inclusion requires a certain level of self-awareness, humility and an appetite to be a lifelong learner. Especially considering that the vocabulary around DEIB/DEIBA or whatever you choose to call it is constantly evolving, there is more we don't know than we know.My chance encounter with Caroline Collier, CEO Inclusion Barnet happened over a LinkedIn recruitment post and my subsequent message to her regarding the language. She was gracious in her response educating me about why they were using ‘disabled person' (instead of person first language). I was slightly mortified but glad that I had the opportunity to engage with Caroline to better understand why they subscribe to the social model of disability. I am grateful to Caroline for making time for this important conversation (a learning opportunity for me). In the episode we spoke about Inclusion Barnet and why it describes itself as a Deaf and Disabled People's organisation, deaf being separate from disabled in deference to the cultural model of deafness. We also spoke at length about the ‘social model of disability; harnessing lived experiences for social change; acceptable language; role of the private sector in opening up opportunities; what allies can do to support; and the just launched ‘Campaign for Disability Justice' calling for a) Opportunity b) Security c) Respect.Did you know that care in the UK is based on a ‘medical model' that frames the body or mind of disabled person as something that needs to be fixed?“We see disability through the ‘social model', where being Disabled is a political term that describes our experience of marginalisation, not individual impairments. The social model allows us to come together to fight back against a world that we can't navigate safely without care and support. This model helps us understand that a flourishing social care system should give us access to choices and the freedom to live independently.We want a system that enables us to live independently, rather than generating a list of ‘care tasks' our local authority can charge us for. The struggle for a better, more equal system should unify us all to talk about intersectionality and disability justice alongside the crucial demands for fair conditions for both paid and unpaid carers, wholesale changes to the gendered imbalance of care responsibilities, and the need to tackle the looming climate crisis, which will affect our capacity to care for one another.” Caroline Collier, CEO Inclusion Barnet Episode Transcript:Sudha: Good morning, Caroline. It's wonderful to have you today as a guest on the Elephant in the Room podcast. Thank you for being hereCaroline: Thank you. Really pleased to be asked, so thank you so much.Sudha: Let's start with a quick introduction to who you are and what you do.Caroline: I'm Caroline Collier. I'm CEO of a deaf and disabled persons' organization called Inclusion Barnet. My background is varied. I started after college working in libraries. Then I ended up in my thirties writing about the construction industry, unusually enough. That changed in 2009 when I became really ill with what turned out to be bipolar. I had a bit of a rethink just because I wanted to find something with a little bit more purpose, and I was incredibly lucky to end up working in the organization that is now...

Little News Ears - Cuddly News
News for Kids at LNE.news - Little Jade Tree News - Special Ability News

Little News Ears - Cuddly News

Play Episode Listen Later Aug 27, 2024 9:12


It's August 28, 2024. Glow is back with news for kids the relate to Asian Americans and beyond. August 2024 Episode 33: A True Friend is Rare to Find on a National Civility Month! FANTASTIC OLYMPIC NEWS! Filipino-American Fencer 2 Gold Medals in Paris Olympics 2024https://time.com/7006812/lee-kiefer-us-olympic-fencing-gold-history/SPECIAL ABILITY NEWS! Sri-Lankan Irish on Disability Justice in America https://www.channelkindness.org/disability-justice-movement/VIRAL CULTURAL NEWS! Asian Dance Craze with American Celebrities https://www.nbcnews.com/pop-culture/budots-filipino-dance-musical-genre-tiktok-sensation-rcna164110SCHOOL IS COOL NEWS! CALTECH Doctorate Math Genius Inspires Future Generations Back in Vietnam https://e.vnexpress.net/news/news/education/caltech-phd-and-math-olympiad-gold-medalist-returns-home-to-inspire-vietnam-s-future-4758399.htmlOUT OF THIS WORLD NEWS! Indian-American Embarks on 3rd Space Mission https://www.businesstoday.in/visualstories/news/indian-origin-nasa-astronaut-sunita-williams-to-fly-in-space-for-the-third-time-131640-26-04-2024

Grad School Femtoring
279: Queering and Cripping Academia: Disability Justice and Mentorship for BIPOC Scholars with Dr. Pau Abustan and Dr. Shayda Kafai

Grad School Femtoring

Play Episode Listen Later Aug 9, 2024 58:58


Today I'm joined by Dr. Pau Abustan and Dr. Shayda Kafai to discuss the intersections of queerness, disability justice and mentorship for BIPOC scholars.  The episode covers the principles of disability justice, personal strategies for self-care, and the importance of building supportive communities and mentorship networks.  Our guests also open up about the challenges that queer, crip, BIPOC scholars face and provide insights into advocating for inclusive and accessible educational spaces. You can reach Dr. Pau on Instagram @dr_pau_phd and Dr. Shayda on Instagram @shaydakafai and on her website: shaydakafai.com Here are the names and links to people and concepts mentioned on the show:  -Margaret Price (Mad at School) -Molly Benitez (affects of labor) -Patty Berne -Leroy F Moore Jr -Leah Lakshmi Piepzna-Samarasinha -10 Principles of Disability Justice: https://www.sinsinvalid.org/blog/10-principles-of-disability-justice -Sins Invalid: https://www.sinsinvalid.org/ -Crip time: https://dsq-sds.org/index.php/dsq/article/view/5824/4684  -Spoon Theory: https://butyoudontlooksick.com/category/the-spoon-theory/ -access is love: https://disabilityvisibilityproject.com/2019/02/01/access-is-love/ One more spot left for my limited time 50% off coaching. Book a consultation and reserve your spot today!  Order my new co-authored graduate school admissions book for first-gen BIPOCs by going to ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠isgradschoolforme.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.  ⁠⁠Book me⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ to speak at your upcoming professional development event.  Get my free 17-page ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Grad School Femtoring Resource Kit⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, which includes essential info to prepare for and navigate grad school.  Follow me on your favorite social media platforms: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠TikTok⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, and ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Twitter⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Support our free resources with a ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one-time or monthly donation⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. To download episode transcripts and access more resources, go to my website: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://gradschoolfemtoring.com/podcast/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠   This podcast is a proud member of the Boundless Audio Podcasting Network. *The Grad School Femtoring Podcast is for educational purposes only and not intended to be a substitute for therapy or other professional services.*  Learn more about your ad choices. Visit megaphone.fm/adchoices

The Chemical Sensitivity Podcast
Crip Kinship: Shayda Kafai, Ph.D.

The Chemical Sensitivity Podcast

Play Episode Listen Later Jul 27, 2024 46:07


Episode 52 of The Chemical Sensitivity Podcast is available now!https://www.chemicalsensitivitypodcast.org/It's called "Crip Kinship."I'm speaking with Shayda Kafai, Ph.D., author of the 2021 book, "Crip Kinship. The Disability Justice & Art Activism of Sins Invalid."Shayda is an associate professor in the Ethnic and Women's Studies Department at California State Polytechnic University, in Pomona, California. You'll hear Shayda talk about Sins Invalid,a disability justice-based performance project and what she calls "crip kinship" and the importance of finding connections online with others with disabilities. Shayda explores the notion of dreaming and dream work, in which we can "embody recurring hope, active love, critical resistance, and radical change," the power of telling stories, and the need to love ourselves. I hope you enjoy the conversation. Please subscribe where you get your podcasts.About Shayda Kafai:https://www.shaydakafai.com/Support the Show.Special thanks to the Marilyn Brachman Hoffman Foundation for its generous support of the podcast.If you like the podcast, please consider becoming a supporter! Support the podcast. Find the podcast on Patreon. If you like, please buy me a coffee. Follow the podcast on YouTube! Read captions in any language. Please follow the podcast on social media:FacebookTwitterInstagramTikTokSponsorship Opportunites Are you an organization or company interested in helping to create greater awareness about Multiple Chemical Sensitivity and Chemical Intolerance and/or looking for sponsorship opportunities? Please email us at info@chemicalsensitivitypodcast.org

The Chills at Will Podcast
Episode 244 with Annie Liontas, Dedicated Educator and Master Chronicler of the Micro, Macro, and Personal in Their Varied and Resonant Memoir, Sex with a Brain Injury: On Concussion and Recovery

The Chills at Will Podcast

Play Episode Listen Later Jul 26, 2024 76:51


Notes and Links to Annie Liontas' Work        For Episode 244, Pete welcomes Annie Liontas, and the two discuss, among other topics, their childhood love of books after early years of learning English as a second language, their teaching life, formative and transformative books and writers, the hot literary scene in Philly, and salient themes and issues in her memoir like writing emotionally-charged material, “invisible disability,” traumatic brain injuries and their personal history, as well as larger narratives about TBI in the carceral system, NFL, and beyond.      Annie Liontas is the genderqueer author of the memoir Sex with a Brain Injury: On Concussion and Recovery, which was featured on NPR's Fresh Air with Terry Gross and selected as SELF Magazine's Book of the Month. Their debut novel, Let Me Explain You, was selected as New York Times Editors Choice. They co-edited the anthology A Manner of Being: Writers on their Mentors, and their work has appeared in The New York Times Book Review, Gay Magazine, NPR, Electric Literature, BOMB, Lithub, The Believer, Guernica, McSweeney's, The Rumpus, and elsewhere. A graduate of Syracuse University's MFA program, they are a professor of writing at George Washington University. Annie has served as a mentor for Pen City's incarcerated writers and helped secure a Mellon Foundation grant on Disability Justice to bring storytelling to communities in the criminal justice system. They co-host the literary podcast LitFriends and live in Philadelphia.   Buy Sex with a Brain Injury   Annie's George Washington University Bio   NPR's Fresh Air Interview with Annie   Emma Copley Eisenberg Writes about Sex with a Brain Injury for Electric Lit   LitFriends Podcast with Annie and Lito Velazquez   At about 1:40, Annie talks about their experience with the legendary Terri Gross At about 3:45, Annie talks about their upbringing and Greek family lineage At about 5:20, Annie homes in on their early days in frustration in transmitting ideas in English  At about 6:20, Annie responds to Pete's questions about how Greek affects their English writing and reading  At about 8:30, Annie discusses their early love of reading At about 11:30, Annie and Pete discuss pleasurable reading and the idea of “favorite books” At about 12:15, Annie and Pete nerd out over Gabriel Garcia Marquez, and Pete recommends “The Handsomest Drowned Man in the World” At about 13:40, Annie speaks to ideas of representation in what they have read  At about 15:20, Annie talks about “wonderful” professors in their time at Syracuse At about 16:20, Annie highlights Justin Torres, Yiyun Li, and other writers whose work is favorited by their students At about 17:50, Annie highlights Philadelphia's huge amount of talent-writers like Marie Helene Bertino, Emma Eisenberg, and Liz Moore At about 20:15, Pete and Annie talks about Annie's memoir's exposition and opening lines; Annie expounds upon seeds for the book At about 23:00, Pete shouts out Ingrid Rojas Contreras' The Man Who Could Move Clouds At about 23:50, The two discuss the ways in which Annie uses second person and tropes about concussions in the memoir At about 26:40, Pete wonders about Annie's decisions in summarizing three main injuries and compliments the draw of the structure; Annie talks about suspense and withholding and shares a resonant quote from George Saunders At about 29:30, Annie discusses “the longitudinal experience” that goes into “I will have my life” that ends the second chapter At about 31:05, Annie responds to Pete's questions about writing emotionally-charged material about beloved people At about 33:05, Annie talks about people doubting the severity of their injuries and a “five-year plan” At about 36:10, Annie shares interesting history about the rail industry and its “bonkers” track record-pun intended-in connection to injuries and “faking” At about 38:30, Pete asks Annie about effects of the brain injury At about 41:05, Pete's got jokes! and Annie talks about the physical effects of their brain injuries At about 42:25, Henry VIII's possible brain traumas are discussed, as are Harriet Tubman's At about 45:15, “Lying as a social act” is discussed in context of Annie's injury and subsequent ill effects At about 48:20, Annie discusses their mother's life and connections between addiction and brain trauma, including Marchell Taylor's moving fight for better care for TBI victims in the carceral system  At about 54:00, Pete highlights a resonant excerpt from the book, Page 67, revolving around queerness At about 57:15, Pete and Annie cite examples from the sporting world and the ways in which women's health concerns are not treated equally  At about 58:30, the NFL and concussions are discussed  At about 1:01:55, Pete and Annie discuss Q&A's with Annie's wife, and Pete wonders about the choice to use redacted parts  At about 1:04:30, Annie juxtaposes the different ways in which Tig Notaro and Ernest Shackleton dealt with trauma At about 1:08:50, Annie highlights the greatness of and beautiful relationship with Ursula von Ridingsvard At about 1:12:00, Annie shouts out their publisher and places to buy the book, as well as how to contact them and find them online; they give background information on her podcast        You can now subscribe to the podcast on Apple Podcasts, and leave me a five-star review. You can also ask for the podcast by name using Alexa, and find the pod on Stitcher, Spotify, and on Amazon Music. Follow me on IG, where I'm @chillsatwillpodcast, or on Twitter, where I'm @chillsatwillpo1. You can watch this and other episodes on YouTube-watch and subscribe to The Chills at Will Podcast Channel. Please subscribe to both my YouTube Channel and my podcast while you're checking out this episode.    I am very excited about having one or two podcast episodes per month featured on the website of Chicago Review of Books. The audio will be posted, along with a written interview culled from the audio. A big thanks to Rachel León and Michael Welch at Chicago Review-I'm looking forward to the partnership!     Sign up now for The Chills at Will Podcast Patreon: it can be found at patreon.com/chillsatwillpodcastpeterriehl     Check out the page that describes the benefits of a Patreon membership, including cool swag and bonus episodes. Thanks in advance for supporting my one-man show, my DIY podcast and my extensive reading, research, editing, and promoting to keep this independent podcast pumping out high-quality content!       This is a passion project of mine, a DIY operation, and I'd love for your help in promoting what I'm convinced is a unique and spirited look at an often-ignored art form.    The intro song for The Chills at Will Podcast is “Wind Down” (Instrumental Version), and the other song played on this episode was “Hoops” (Instrumental)” by Matt Weidauer, and both songs are used through ArchesAudio.com.     Please tune in for Episode 245 with Shannon Sanders, who is a Black writer, attorney, and author of the linked story collection Company, which was winner of the 2023 LA Times Art Seidenbaum Award for First Fiction. Additionally, her short fiction was the recipient of a 2020 PEN/Robert J. Dau Short Story Prize for Emerging Writers.     The episode will go live on July 31.     Lastly, please go to https://ceasefiretoday.com/, which features 10+ actions to help bring about Ceasefire in Gaza.  

Queer Goggles
Disability Justice with Sarah Marquez

Queer Goggles

Play Episode Listen Later Jul 26, 2024 43:07


On this episode of Queer Goggles, host Phae Lockwood (they/them) welcomes guest Sarah Marquez (she/her), a Disability Justice Facilitator and Consultant, to discuss Disability Pride Month, disability justice, and its significance to the LGBTQ+ community.Sarah delves into the history the Disability Rights Movement and shares her journey as a queer, disabled person. This conversation explores the intersectionality of disability and LGBTQ+ identities, highlighting the importance of community-building and the ongoing fight for adequate care and access.Learn more about The SourceSupport the Show.

Sex Ed with DB
BEST OF: Sex and Disability

Sex Ed with DB

Play Episode Listen Later Jul 24, 2024 39:49


From the archives of Sex Ed with DB, enjoy these two amazing conversations exploring sex, disability, and relationships! First: comedian, actor, and disability advocate Steve Way discusses dating and disability representation on TV. Then, New York Times bestselling author and mental health advocate Allison Raskin candidly shares her journey managing OCD and how it impacts her relationships. Hear the full episodes: Dating and Disability with Steve Way  OCD and Mental Health Advocacy with Emotional Support Lady, Allison Raskin ——   Do you have a silly sex story to share, need some advice, or have thoughts on the episode you just heard? Send us a voicemail for a chance to be featured on the podcast!  —— Follow Sex Ed with DB on: Instagram: @sexedwithdbpodcast TikTok: @sexedwithdbTwitter : @sexedwithdbThreads: @sexedwithdbpodcast YouTube: Sex Ed with DB Rep your favorite sex ed podcast with our brand new merch! Sign up for our newsletter with BTS content and exclusive giveaways here. Are you a sexual health professional? Check out DB's workshop: Building A Profitable Online Sexual Health Brand. Want to get in touch with Sex Ed with DB? Email us at sexedwithdb@gmail.com. —— Sex Ed with DB, Season 10 is Sponsored by: Lion's Den, Uberlube, and Magic Wand. Get discounts on all of DB's favorite things here! —— About Sex Ed with DB: Sex Ed with DB is a feminist podcast bringing you all the sex ed you never got through unique and entertaining storytelling, centering LGBTQ+ and BIPOC experts. We discuss topics such as birth control, pleasure, LGBTQ+ health and rights, abortion, consent, BDSM, sex and disability, HIV, sex in the media, and more. —— Sex Ed with DB, Season 10 Team: Creator, Host, Executive Producer: Danielle Bezalel (DB) Producer: Sadie Lidji Communications Lead: Cathren Cohen Marketing Coordinator: Mitch Coburn Social Media Coordinator: Emm-Kirsty Fraser

Traipsin' Global on Wheels Podcast Hour
Amu Urhonen, Finnish Politician: What is the progress of disability justice in Finland?

Traipsin' Global on Wheels Podcast Hour

Play Episode Listen Later Jul 20, 2024 35:58


Amu Urhonen is a disability activist and disability rights expert based in Tampere, Finland. She has worked with disability rights since 1997 when she was 17 and joined a disability rights organisation when she realised the importance of persons with disabilities working for their rights.   Currently, she is working at FELM (Finnish Evangelical Lutheran Mission) as a disability inclusion adviser and as a chairperson of Abilis Foundation that provides funding for grassroot level organisations of persons with disabilities in developing countries. She is a member of ODIHR panel of politicians with disabilities. She has worked in research projects about disability history, disability activism and political participation of persons with disabilities. In the beginning of the COVID-19 pandemic, she worked for IFRC making sure disability inclusion would be considered in their COVID measures. Urhonen is a Theologist and Sexual Counsellor who has also studied Social Sciences. On her free time, Urhonen enjoys literature and travelling in Europe by train. 

The Intersection
Equity, Belonging, and Disability Justice: One Leaders Commitment to Systemic Change

The Intersection

Play Episode Listen Later Jul 17, 2024 38:24


Happy Wednesday and welcome back to the Intersection Podcast! In this episode, I have the privilege of speaking with Gizelle Clemens, Director of Alumni and Donor Engagement at National Medical Fellowships. Gizelle is a fervent leader working at the intersection of disability, gender, and race. She is both a disruptor and unifier driving systemic organizational changeGiselle shares her personal experience as a Black disabled woman and the challenges she faced in getting a proper medical diagnosis. She emphasizes the importance of representation, highlighting how having a Black female doctor finally led to her medical issues being identified and treated.In this conversation, we discuss…Gizelle's commitment to health equity.The challenges faced by people with disabilities in the workplace and how organizations can create cultures of equity and belonging.Her vision for disability justice, which includes eliminating barriers to transportation, housing, and access to resources.This episode is a must-listen for organizational leaders. Giselle challenges us to take action and make our workplaces and communities more accessible for people with disabilities, which ultimately benefits us all. Resources: Gizelle Clemens LinkedinCrip CampDisabilityLeadEmily Blum

Blaisin' Access Podcast
S3E183 - Blaisin Access 183 Climate Change and Disability Justice

Blaisin' Access Podcast

Play Episode Listen Later Jul 17, 2024 6:04 Transcription Available


# Have you ever thought of climate change as a disability justice issue? Today Blaise talks about the need for people with disabilities to be more involved in emergency preparedness. What do you think? Let Blaise know, subscribe, rate/review, and support the Disability Pride fund drive at blaisinshows.com.Read transcript

Stories Lived. Stories Told.
On Disability Justice & Changing Stories with Hannah Soyer | Unheard Stories Series | Ep. 107

Stories Lived. Stories Told.

Play Episode Listen Later Jul 15, 2024 59:59


How did you (or did you not) see yourself represented in stories growing up and how did that shape your understanding of yourself?How has your story changed?...Hannah Soyer is a queer disabled writer living in the Midwest. She has written fornationally acclaimed publications such as The Sun Magazine, Bustle, and Cosmopolitan and is the editor of The Ending Hasn't Happened Yet: An Anthology of Disability Poetics from Sable Books (2022). Her debut lyric memoir, Dreams in Which I'm Almost Human, is forthcoming from Red Hen Press. Hannah also happens to be a cat and chocolate enthusiast.Today, Hannah begins by introducing herself, including how her creative work centers around her neuromuscular disability, was largely prompted by mental health struggles she had a young adult, and how it has become a sacred and magical place. Abbie and Hannah discuss why they both love stories, what it means that Hannah sees storytelling as “beautiful acts of survival, resistance, and community building,” and how our stories change with us. ...Stories Lived. Stories Told. is created, produced & hosted by Abbie VanMeter.Stories Lived. Stories Told. is an initiative of the CMM Institute for Personal and Social Evolution....Music for Stories Lived. Stories Told. is created by Rik Spann.Find Rik on  ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.Listen to our conversation with Rik in ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Ep. 8⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠....Visit the Stories Lived. Stories Told. website.Follow Stories Lived. Stories Told. on Instagram.Subscribe to Stories Lived. Stories Told. on YouTube.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Explore all things Stories Lived. Stories Told. here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.Subscribe to CMM Institute on Substack.Connect with the CMM Institute on LinkedIn and Facebook.Access all CosmoActivities for FREE!Participate in the CosmoParents Survey.Visit the CMM Institute website.Learn more about Cosmopolis 2045.

Stuff Mom Never Told You
Feminists Around the World: Doaa Shayea

Stuff Mom Never Told You

Play Episode Listen Later Jul 9, 2024 8:34 Transcription Available


Today we're highlighting athlete, activist, speaker and artist Doaa Shayea. See omnystudio.com/listener for privacy information.

Always Looking Up
Rebecca Williford On DRA And Changing The Fabric Of Society

Always Looking Up

Play Episode Listen Later Jul 1, 2024 56:41


In this week's episode I sat down with Rebecca Williford. Rebecca is a seasoned, nationally recognized disability community leader and an ardent disability rights litigator, currently serving as the President & CEO of Disability Rights Advocates (or DRA), the leading national nonprofit disability rights legal center whose mission is to advance the rights, inclusion, and equity of people with disabilities through high-impact litigation, education, and advocacy. We discuss the role legal action plays in the disability rights movement, how DRA is changing the fabric of society and what it means to be a disabled person, and much, much more. Follow Rebecca: Instagram: @rebecca.williford.dra LinkedIn: Rebecca Williford Follow Disability Rights Advocates: Instagram: @dralegal LinkedIn: Disability Rights Advocates Website: https://dralegal.org Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com This episode was edited and produced by Ben Curwin

Sithty Minutes
A New Legislator - Rep. Ortiz and Disability Justice

Sithty Minutes

Play Episode Listen Later Jun 21, 2024 59:33


Welcome back Kyber Squadron! This week, Andrés talks with Rep. David Ortiz about Disability Justice, Historical Buildings, and the most dangerous Star Wars Villians! Come for the Jet Ski acronym, stay for protest history! Follow us: Threads: @Sithty_Minutes  Instagram: @PaulaBear92 @RBW3000 @General_Leia_The_Pup @aaa__photog  Rep. Ortiz: Davidortizcolorado.com @DavidDOrtizCO Show Notes: Schindler's List HB24-1360 Colorado Disability Opportunity Office Longest Occupation of Federal Offices New Office, New Opportunities Fort William Henry HB24-1454 Digital Noncompliance Grace Period HB21-1110 Colorado Laws for Persons with Disabilities Justice Department Weighs in on Web Access Turo Empire Strikes Back Rogue One TABOR Obi-Wan Kenobi Ahsoka Tano

AMA Journal of Ethics
Author Interview: “What Does Disability Justice Require of Antimicrobial Stewardship?"

AMA Journal of Ethics

Play Episode Listen Later Jun 15, 2024 7:55


Dr Katie Savin joins Ethics Talk to discuss their article, coauthored with Drs Laura Guidry-Grimes and Olivia Kates: “What Does Disability Justice Require of Antimicrobial Stewardship?”  Recorded February 20, 2024.  Read the full article for free at JournalOfEthics.org

Build the Change
The Disability Advocates

Build the Change

Play Episode Listen Later May 29, 2024 26:49


More and more, it feels like our country is offering its citizens the care they need to survive, but not to thrive. At the same time, we're witnessing an increase of attempts to repeal health coverage laws like the Affordable Care Act, and privatize programs like Medicaid. This has left the disability community at the forefront of the fight to protect and expand our governments' care resources. So, what happens when you get tired of waiting around for change and you decide to take matters into your hands? We'll hear from a disability justice advocate who decided to run for office to bring awareness to the care crisis. As well as a mother of a medically complex child who founded her own lobbying organization aiming to influence healthcare policies in Congress. In our final episode of the season, we're talking about care access, disability justice and the political power of the disability community.Learn more about how you can build change at actblue.com/buildthechange or follow us on Instagram and TikTok.

Sex Ed with DB
Sex With a Brain Injury with Annie Liontas

Sex Ed with DB

Play Episode Listen Later May 22, 2024 54:12


Annie Liontas, author of Sex with a Brain Injury, sits down with DB to discuss the challenges of sex and intimacy after experiencing brain injuries. DB and Annie also answer a listener's question about having sex for the first time with someone you don't know, and play a fun round of sexy trivia! 11:53 Challenges in sex and intimacy when you have a brain injury 21:20 Socio-political impact of brain injuries 25:02 The exclusion of women in medical research 26:21 Navigating sex after a brain injury 32:53 Bedroom Brainiacs: Fun sexy trivia! 43:32 Booty Call! Answering a listener's question about losing virginity Annie Liontas is the genderqueer author of the queer-crip memoir Sex with a Brain Injury: On Concussion and Recovery, which was featured on NPR's Fresh Air with Terry Gross and selected as SELF Magazine's Book of the Month. They co-host the literary podcast LitFriends. At George Washington University, they helped to secure a Mellon Foundation grant on Disability Justice to bring storytelling to communities in the criminal justice system. Annie lives in Philadelphia with their wife, dog, and Email the rabbit. ——   Do you have a silly sex story to share, need some advice, or have thoughts on the episode you just heard? Send us a voicemail for a chance to be featured on the podcast!  —— Follow Sex Ed with DB on: Instagram: @sexedwithdbpodcast TikTok: @sexedwithdbTwitter : @sexedwithdbThreads: @sexedwithdbpodcast YouTube: Sex Ed with DB Rep your favorite sex ed podcast with our brand new merch! Sign up for our newsletter with BTS content and exclusive giveaways here. Are you a sexual health professional? Check out DB's workshop: Building A Profitable Online Sexual Health Brand. Want to get in touch with Sex Ed with DB? Email us at sexedwithdb@gmail.com. —— Sex Ed with DB, Season 10 is Sponsored by: Lion's Den, Uberlube, and Magic Wand. Get discounts on all of DB's favorite things here! —— About Sex Ed with DB: Sex Ed with DB is a feminist podcast bringing you all the sex ed you never got through unique and entertaining storytelling, centering LGBTQ+ and BIPOC experts. We discuss topics such as birth control, pleasure, LGBTQ+ health and rights, abortion, consent, BDSM, sex and disability, HIV, sex in the media, and more. —— Sex Ed with DB, Season 10 Team: Creator, Host, Executive Producer: Danielle Bezalel (DB) Producer: Sadie Lidji Communications Lead: Cathren Cohen Marketing Coordinator: Mitch Coburn Social Media Coordinator: Emm-Kirsty Fraser

Judaism Unbound
Episode 431: Disability Justice Torah Circle

Judaism Unbound

Play Episode Listen Later May 17, 2024 51:42


Jess Belasco is the founder and director of The Disability Justice Torah Circle, a space in which Jews with disabilities can build community around Torah, engage Jewish text through a disability justice lens, and nurture and amplify their voices to impact the broader Jewish community. They join Lex Rofeberg and Dan Libenson for a conversation about what disability has to say about Torah and what Torah has to say about disability.There are some amazing mini-course offerings beginning next week in the UnYeshiva. Check out these classes at www.judaismunbound.com/classes! And sign up for ShavuotLIVE, our 24-hour festival of Jewish learning (June 8-9) by heading to bit.ly/shavuot2024!Access full shownotes for this episode via this link. If you're enjoying Judaism Unbound, please help us keep things going with a one-time or monthly tax-deductible donation -- support Judaism Unbound by clicking here!

Always Looking Up
Judge Sunny Bailey On The DAAY Court And A New Approach To Seeking Justice

Always Looking Up

Play Episode Listen Later Apr 29, 2024 56:20


In this week's episode I sat down with Judge Soonhee “Sunny” Bailey. Judge Bailey sits on Nevada's Eighth Judicial District Court. In 2018 she created the Detention Alternative for Autistic Youth (DAAY) Court, a diversionary court that focuses on providing services aimed to help youth with Autism Spectrum Disorder (ASD) remain out of the criminal justice system. We discuss how the DAAY court works, how it differs from the traditional juvenile court system, what empowered her to establish the DAAY Court, the future she envisions for it and much, much more. Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com/ Email: alwayslookingup227@gmail.com

Otherppl with Brad Listi
894. Annie Liontas

Otherppl with Brad Listi

Play Episode Listen Later Jan 28, 2024 87:17


Annie Liontas is the author of the memoir-in-essays Sex with a Brain Injury, available from Scribner. Liontas is also the author of the novel Let Me Explain You, and they co-edited the anthology A Manner of Being: Writers on their Mentors. Their work has appeared in The New York Times Book Review, Gay Magazine, NPR, Electric Literature, BOMB, Lithub, The Believer, Guernica, McSweeney's, The Rumpus, and elsewhere. A graduate of Syracuse University's MFA program, they are a professor of writing at George Washington University. Liontas has served as a mentor for Pen City's incarcerated writers and helped secure a Mellon Foundation grant on Disability Justice to bring storytelling to communities in the criminal justice system. They co-host the literary podcast LitFriends and live in Philadelphia with their wife, dog, and Email the rabbit. *** Otherppl with Brad Listi is a weekly literary podcast featuring in-depth interviews with today's leading writers. Available where podcasts are available: Apple Podcasts, Spotify, YouTube, etc. Subscribe to Brad Listi's email newsletter. Support the show on Patreon Merch Twitter Instagram  TikTok Bluesky Email the show: letters [at] otherppl [dot] com The podcast is a proud affiliate partner of Bookshop, working to support local, independent bookstores. Learn more about your ad choices. Visit megaphone.fm/adchoices

Live Like the World is Dying
S1E101 - Leah on Disability and Preparedness

Live Like the World is Dying

Play Episode Listen Later Dec 22, 2023 83:31


Episode Summary This week on Live Like the World is Dying, Margaret and Leah talk about disability, preparedness, and covid. Guest Info Leah Lakshmi Piepzna-Samarasinha (They/She) is a writer and structural engineer of disability and transformative justice work. Leah can be found at brownstargirl.org, on Instagram @leahlakshmiwrites, or on Bluesky @thellpsx.bsky.social Their book The Future is Disabled: Prophecies, Love Notes, and Mourning Songs can be found: https://bookshop.org/p/books/the-future-is-disabled-prophecies-love-notes-and-mourning-songs-leah-lakshmi-piepzna-samarasinha/18247280 Their book Care Work: Dreaming Disability Justice can be found: https://bookshop.org/p/books/care-work-dreaming-disability-justice-leah-lakshmi-piepzna-samarasinha/16603798 Host Info Margaret (she/they) can be found on twitter @magpiekilljoy or instagram at @margaretkilljoy. Publisher Info This show is published by Strangers in A Tangled Wilderness. We can be found at www.tangledwilderness.org, or on Twitter @TangledWild and Instagram @Tangled_Wilderness. You can support the show on Patreon at www.patreon.com/strangersinatangledwilderness. Transcript Leah on Disability and Preparedness Resources Mentioned: StaceyTaughtUs Syllabus, by Alice Wong and Leah: https://disabilityvisibilityproject.com/2020/05/23/staceytaughtus-syllabus-work-by-stacey-milbern-park/ NoBody Is Disposable Coalition: https://nobodyisdisposable.org/ Power To Live Coalition: https://www.powertolivecoalition.org/ Disability Visibility Project article about Power to Live : https://disabilityvisibilityproject.com/2019/10/26/call-for-stories-powertolive/ Power to Live survival skillshare doc: http://tinyurl.com/dissurvival Long winter crip survival guide for pandemic year 4/forever by Leah Lakshmi Piepzna-Samarasinha and Tina “constant tt” Zavitsanos https://www.tinyurl.com/longwintersurvival Pod Mapping for Mutual Aid by Rebel Sydney Rose Fayola Black: https://docs.google.com/document/d/1-QfMn1DE6ymhKZMpXN1LQvD6Sy_HSnnCK6gTO7ZLFrE/mobilebasic?fbclid=IwAR0ehOJdo-vYmJUrXsKCpQlCODEdQelzL9AE5UDXQ1bMgnHh2oAnqFs2B3k Half Assed Disabled Prepper Tips for Preparing for a Coronavirus Quarantine. (By Leah) https://docs.google.com/document/d/1rIdpKgXeBHbmM3KpB5NfjEBue8YN1MbXhQ7zTOLmSyo/edit Sins Invalid Disability Justice is Climate Justice: https://www.sinsinvalid.org/news-1/2022/7/7/disability-justice-is-climate-justice Skin Tooth and Bone: The Basis of Movement is Our People (A disability justice primer): https://www.sinsinvalid.org/disability-justice-primer DJ Curriculum by Sins: https://www.sinsinvalid.org/curriculum Partnership for Inclusive Disaster Strategies: https://disasterstrategies.org/ Live Like the World is Dying: Leah on Disability & Preparedness **Margaret ** 00:15 Hello, and welcome to Live Like the World is Dying, your podcast for what feels like the end times. I'm your host, Margaret killjoy. And I always tell you that I'm excited about episodes, but I'm really excited about this episode. It put me in a better mood than when I started the day that I get to record this episode. Because today, we're going to be talking about disability and preparedness. We're gonna be talking about Covid abandonment. And we're gonna be talking about a lot of the questions that... a lot of the questions that people write us to talk about that they have about preparedness and I think that we can cover a lot of those. Not me, but our guest. But first before the guest, a jingle from another show on the network. Oh, the network is called Channel Zero Network. It is a network of anarchists podcasts and here's a jingle. [sings a simple melody] **Margaret ** 01:08 Okay, and we're back. So, if you could introduce yourself with your name, your pronouns, and then I guess just a little bit about how you got involved in thinking about and dealing with disability and preparedness. **Leah ** 02:00 Sure. Hi, my name is Leah Lakshmi Piepzna-Samarasinha. She and They pronouns. Right now I live in Pocomtuc and Nipmuc territories in Western Massachusetts. And that is a great question. I will also just plug myself briefly and be like I'm a disability justice and transformative justice old sea-hag, aging punk of color who has written or co-edited ten books and done a lot of shit. Okay, so when I was sitting on the toilet thinking about "What do I want to tell Margaret when we get on the show?", I was actually thinking that my disability and my preparedness routes are kind of one in the same because... So I'm 48 [years old] now and I got sick when I was 21-22. So like back in 96-97. And, it was the initial episode that I got sick with chronic fatigue, ME, and fibromyalgia. And I was just super fucking ill and on the floor and was living in Toronto as somebody who was not from Canada. And, you know, I was just sick as hell, like crawling to the bathroom, like sleeping 18 hours a day. The whole nine. And I'd been really really deeply involved in anarchist of color and prison abolitionist and antifascist organizing and lots of stuff. I had a community, but it was 1997, so most of my community was just like, "What you're sick? Why didn't you make it to the meeting? We have to write all the prisoners with the [untranslatable]." And I was just like, "I just.... Okay, great." Like it was a really different time. There was no GoFundMe, mutual aid, Meal Train, someone brought me some soup. Like, know you, we weren't really doing that. And people really did not have a consciousness around, "You can be a 22 year old brown, nonbinary femme and be really, really sick and be disabled." So something I think a lot, and I've said before, is that disabled people are really used to the concept that no one is going to save us and we are really not surprised when state systems abandoned us because we live in that all the time. And so I was just like this little 22 year old sicko weirdo who'd read my Octavia Butler--and, in fact, that was part of the reason why I was like, "Toronto, great, there's gonna be more water and less heat." Okay, wasn't totally right about that. But, you know, I mean, I really had to save myself and I kind of was like, "Alright, I don't have..." Like, I'm working off the...I'm working under the table. I have hardly any money. I'm gonna make my own herbal medicine. I'm gonna grow a lot of what I eat from my backyard. I'm going to store water. I'm going to run a credit card scam and get a lot of dried goods and live off of those for like a year. [Margaret Hell Yeahs] Yeah, stuff like that. I feel like from there, over the last, you know, 26 years like it's....like, that's the route. The route was, you know, similar to a lot of people, I think of my generation, we were like on the cusp of looking at the current crises of like hot fascist war, hot eugenics war, hot climate crisis, and being like, "It's coming," and I started being like, "Yeah, like don't...don't think that it's all going to work out okay and that somebody else is going to fix it for you." So, I would say that's where my initial route--and then do you want to jump in? Or can I jump ahead like 20 years or something? **Margaret ** 05:10 Honestly, you could jump ahead 20 years later. I'm gonna come back and make you talk more about Octavia Butler. But we'll do that later. **Leah ** 05:16 Let's talk more about Octavia Butler because I have a lot of stuff about Octavia Butler and how she thought of--and I think sometimes misused--like nowadays [this is probably not the word but it's untranslatable] and also about disability. [Margaret "Oooohs" curiously] I know. We can get to that. Okay, so that's one route. And then, you know, I mean, I was always kind of like a little weirdo, where it's like, yeah, I grow most of my own food--or as much as I can--and it's not a fun green hobby. It's like, I'm broke as fuck and I need to grow a lot vegetables that fucking, you know, I can mulch and that can stay growing into December, you know? I stashed stuff. Something I also think a lot, is that as disabled people--and we talked about this a little bit when we're emailing--I think we're always prepping whether we call it that or not. Like most disabled folks I know just do shit. Like if you get a prescription and you have extra, you store it, you know? Like, if you can get a double dose, you put that aside. And then maybe you have it for yourself. Or, there's so many disabled mutual aid networks I've been a part of where someone's--I mean, before Facebook clamped down, this is really common on a lot of Facebook disabled groups--someone would be like, "Yo, does anyone have an extra five pills of such and such?" and I've seen total strangers for 15 years of disability justice be like, "Yep, what's your address? I do. I'm gonna mail it to you. I have my old pain meds. I've got this. I've got that." But, um, yeah, like doing the jumping forward that I promised you, so for people who don't know, disability justice as a movement was founded around 2005 by a group, a small group of disabled Black, Asian, and poor and working class, white disabled folks, who were all pretty, you know, gay, trans, and radical. And they were like, "We want to bring a revolutionary intersectional out of our own lives and experiences and issues. We want to create a disability movement that's for us and by us that's not just white, single issue, often cis, often male, often straight." Like, we want to talk about the fact that 50% of bipoc folks who were killed by the cops are also disabled, deaf, neurodivergent, etc... just to give one example. So, you know, that was '05 in Oakland, you know, Patti Burn, LeRoy Moore, Stacy Milbern, Ely Claire, Sebastian Margaret, Stacey Milbern Park, you know, the six. And I was living in Toronto and I moved to Oakland in '07 and I was kind of around for some of the beginnings of it. There's two stories I want to bring in. One actually predates my move. It was right when I was getting ready to leave Toronto, I got invited to go to this reading by a bunch of queer--I think all white--disabled radical folks. And I was just like, "Oh?" And I did the whole, like, "Am I really disabled enough?" and then it was like, "Oh, it's gonna be really depressing." And then it was really awesome. And I was like, "Whoa, disability community. Life saving." But it was kind of one of my moments of being brought into the disability community because there was this writer who was there who, their reading series was actually a choose your own adventure where there's four disabled, queer, and trans folks who are having a sex party and the zombie apocalypse happens. And then they have to figure out how to survive it without abandoning each other. And it was all like, "Okay, you all get to the van, but then there's no ramp. What do you do? Oh! You get this accessible ramp, but it smells like perfume and somebody has NCS. What do you do? And I was just sitting there with my mouth open--and it was also interwoven with like, 'Yeah, and then somebody's fucking somebody else with like, you know, a dildo strapped to their prosthetic,'" and I was like, wow, I fucking love disability. Like, sign me up. But I gotta say briefly, that was one of my first examples of like, you know, there's a really important phrase in Disability Justice, which is, "No one left behind, " right? Like, that's one of the core organizing principles. And that was kind of.... Before I even heard that phrase, I was like, "Fuck like this is..."--because I'd been around antiauthoritarian, quasi prepper, like "shit's gonna happen, we have to get ready." But I was always kind of quiet in the corner closeting my disability being like, "Well, shit, like, what if I don't have my meds? Or what if I'm too.... What if I can't run away from, you know, the Nazis or the zombies because I have a limp and I walk with a cane? Like, what if?" And that was my first example of this cross disability fantasy space of like, "We're going to escape together and we're not going to let anyone get eaten and it's going to mean really being creative about access stuff." Okay so jump ahead to, right, then I moved to Oakland and then I ran into actual Disability Justice community through Sins Invalid, which is an incredibly important foundational Disability Justice group, and through a lot of friendships I started making with other QTBIPOC disabled folks and my really, really good friend Stacy Park Milbern, who, people should totally know her work. She's incredible. She was one of the best movement organizers that the movement has ever seen. And we met online. And she was living in Fort Bragg, North Carolina with her family on the base because her family's military. And she was a queer southern, working-class, Korean and white, you know, physically disabled organizer from when she was really young. And then she was like, "Okay, I love my family, but I'm literally hiding my gay books in the wall because my mom's Pentecostal." So, yeah, and she's like--I literally realized she tells the story a lot--she's like, "Yeah, like, I realized I hadn't really left the house for a couple months and like, this is gonna be it," and she's like, "I was literally watching Oprah. And Oprah said, 'No one's coming to save you.'" And she was like, okay. She's 21 years old. And then through online, disabled, queer of color community there was this--or she organized--this initiative called To the Other Side of Dreaming where she moved crosscountry with Mia Mingus, who's another queer Korean organizer who was a friend of hers, ad moved to the Bay Area. And so that was around 2010-2011. And then in 2011, what happens but the Fukushima nuclear accident, right, disaster? And we're all on the West Coast--and it's completely ridiculous bullshit, looking back on it now--but all of these Bay Area folks were like, "Oh my God! Radiation!" And some people pointed out, "Look, you know, we're not.... There's...it's a big ocean. The people who really have to worry are in Japan and areas around it, so whatever?" But it was one of those times where we were like, fuck, this is a really big nuclear accident and we are sort of close and it's making us think about disaster. And I remember just going to fucking Berkeley Bowl, which is this big, fancy, organic supermarket and people had bought out all of the burdock all the fucking seaweed. And I was like, "Oh, my God, these people." But out of that, Stacy started having conver--and I and other people who were in our organizing network of disabled, majority BIPOC--were like, "What are we going to as disabled BIPOC if there is an earthquake, fascism, like another big disaster? And Stacy said, really bluntly, she's like, "You know," and she was a power wheelchair user. She used a ventilator. You know, she's like, "Yeah, I am supported by electricity and battery dependent access equipment." And she's like, "Well, I'm going to be really honest, my plan has always been, if something happens, I'm just going to lay down in my bed and die, because I don't think that any emergency services are going to come save me and the power is going to run out in 48 hours. And then we were like, "Okay, that's super real. What if, through our amazing collective access stuff we're doing, we could figure out something else?" And we had this meeting at Arismendy bakery, which for folks who know, is like a worker owned co-op chain, Our friend Remedios worked there. It's wheelchair accessible. We met there after hours. And it was just like, 12-15 of us who started just sitting there and being like, "What are the resources we have? What are the needs we have? And we made this map, which I still have, which I think I shared with you, which is just like, "Apocalypse, South Berkeley/Oakland Map 2011," where we were like, "Okay, you know, when the power goes down, the communication goes down. We're gonna meet at this one traffic circle because people who are wheelchair users can roll up. And we're gonna bury note paper in a mason jar with pens and we're gonna leave notes for each other. But we're also going to agree to meet there the day after at noon." And I was like, okay, my collective house, the first floor is wheelchair accessible. We have solar, we have a landline. And we have a lot of space. So like, let's meet there. And then someone was like, "We've got the one accessible van. And we know, it's only supposed to fit 4 people, but we can fit like 12 in there." And we started.... Like, I just think about that a lot because it's, I think it was a really important moment where it was important...the stuff that we did like that--you know, the actual strategies and the resources we started talking about--but it was also that it was the first time in my life that I was like, "Okay, we're not--not only are we not going to just die alone in our beds, I'm also not going to be the one person who survives. Like, I can actually survive with, and because of, other people. And we're all disabled BIPOC with a couple of disabled white folks. And we can actually collectively strategize around that. And this will be my last leap forward, because I see that you're like, "I want to ask you stuff." So, you know, eight years go by, and in that time we all do an incredible amount of Disability Justice organizing and strategizing. And, you know, in 2019.... And a lot of it started to be around climate disaster on the West Coast. Like, I moved to Seattle in 2015. The wildfires started being really bad a year or two later. A lot of us were involved in mask distributions, just spreading information about smoke safety and survival. And then 2019 was the infamous year where the wildfires came back and Pacific Gas and Electric, in all of its fucking glory, which is the main--for people who don't know--it's the main utility electrical company in Northern California. They announced two days before wildfires were going to really impact the Bay, they were like, "Oh, so we've decided that our strategy is going to be that we're just going to shut down all the power in Northern California. **Margaret ** 14:52 No one uses that. [Sardonically] **Leah ** 14:53 No one uses that. And they're like, "Oh, if you have a medical need, call this number, and we'll make sure to leave it on at your house." and Stacey was, "Okay." She had just bought her house, the Disability Justice Culture Club in East Oakland, you know, which was her house but also a community center, de facto community center, that housed a lot of disabled folks of color. And she was like, "I was on the fucking phone for eight hours. Like, I never got through." And she and some comrades started this campaign called Power to Live where they were like.... It started out as, "Okay, we can't save everybody, but we're not going to just lay down and die. What do we do?" So it started out as like, okay, let's identify who has housing that still has power. There's some people in Richmond, there's some people in this neighborhood, but then it also developed into this thing where it was just this amazing crowdsource survivalist resource where it was everything from, she's like, "Here's a number. Here's an email. If you need something, text us, call us, email us. We have a team of eight people. We'll figure it out. If you have something to offer, do it too." And then some of it was that people were sharing everything from generator information, to generator shares, to people in different areas-- like I was in Seattle and we were like, "Okay, we will mail you generators and air purifiers, because it's obviously all sold out in the Bay, but we can get it here and get it to you." The thing that always stands out to me is people being like, "Oh, yeah, here's how you can use dry ice and clay pots to keep your insulin cold if refrigeration goes down." And there's a lot more I could say about that action and how amazing it was. But for me, when I think about the through line, I'm like, that moment in 2011, when we all got together, and were like, "What do we do?" we were prepping for what we couldn't fully predict, you know, the exact manifestation of eight years later. We're there and we're like, "Okay, there's wildfires, there's smoke, there's no fucking power, and we've not only built our organizing base, we built our relationships with each other so that we can actually trust each other and more or less know how to work together when this shit actually is hitting the fan to create something that's really life giving. Okay, I'll shut up. That was a lot. **Margaret ** 16:52 Now I have so many questions about all of it. **Leah ** 16:53 Yeah, ask me all the questions. **Margaret ** 16:55 Because there's a couple...there's a couple of questions and/or feedback that we get with Live Like, the World is Dying a lot. And some of them are very specifically disability related, and you covered most of them, but I want to highlight some of them. Like a lot of people write and are like, "Well, I rely on the following thing that is provided by civilization. So my plan is to lay down and die." Right? This is a--and I know you've kind of answered it--but I.... I want to ask more. Okay, I'll go through all the things. Okay. So to talk more about what "No One Left Behind," means? And then the other thing that really stands out to me is that, you know, when we were talking, when we were talking about what we were going to talk about on this on this episode, I was saying, okay, we can talk about, you know, making sure that preparedness is inclusive and open and includes disabled folks, or whatever, and you pointed out, really usefully, the, the necessity to reframe it. And I think that the story you just gave is a really beautiful example of this, where it's less about, like, "Hey, make sure to pay attention to the people who need canes," you know, or whatever, right? Like, you know, "make sure you keep track of folks based on disability." And more than like the thing you just described, is the thing that we're always trying to push, which is that you need to make a list of all the resources and needs within your community and then figure out how to meet those needs and instead of assuming that we can't meet those needs, figuring out how to actually do it. And so I love that it's actually like.... It's actually disability justice movements that we should be learning from, I mean, or participating in, depending on our level of ability, or whatever, but I just find that I find both of those things really interesting. And so I wonder if you have more that you want to say about alternatives to laying down and dying, and specifically, to tie into the other thing that I get asked the most or that I get the common feedback is--because we talk a lot about the importance of community for preparedness on this show--a lot of people don't feel like they have community and a lot of people write to be like, "I don't have any friends," or "I don't know any other people like me," or, you know. And so, I guess that's my main question is how do.... [Trails off] Yeah, how do? **Leah ** 19:22 So how do you make community when you don't have community? Alternatives to lying down and dying? And was there a third one in there? **Margaret ** 19:28 I was just highlighting how cool it is that y'all sat there and made a list of resources and needs, which is exactly what.... Instead of deciding things are impossible, just being like, "Well, let's just start doing them." You know? **Leah ** 19:40 And I think.... Okay, so I'll start there. Like I think that like.... You know, Corbit O'Toole, who's like a, you know, Disability Rights Movement veteran and like older Irish, disabled dyke, you know, in Crip Camp, the movie, she's like, "Disabled people live all the time with the knowledge that the society wants thinks we're better off dead," right? Like one...back in the day, you know, there's a--I think they're still active--one of the big Disability Rights direct action organizations was called Not Dead Yet, right? [Margaret Hell Yeahs] I think this is the thing is like I think that sometimes abled people or neurotypical people are not used to sitting down and making the list. And I think that even if disabled people aren't preppers, we're used to being like, "Okay, what do I need? Fuck, I need somebody to help me do my dishes. Oh, I can't bend over. I need to figure out what is the access tool that will allow me to pick up something from the floor when my that goes out? Like, if my attendant doesn't show up, can I have a..." You know, like, my friends always like, "Yeah, I've got a yogurt container by the bed in case my attendant doesn't show up so I can not piss the bed. I can lean over and piss in the yogurt container." Like there's a--and I think that.... God, I mean, there's been so many times over the years where I've done or been a part of doing like Disability Justice 101 and me and Stacy would always talk about crip wisdom and crip innovation and people will just look blank like "What are you talking about? You guys are just a bunch of sad orphans at the telethon." It's not just about making the list, it's also about how disabled disability forces you to be innovative. Like, Stacy would always share this story where she's like, "Yeah," like, she's like "Crip innovation is everything from," she's like, "I save a lot of time sometimes by pretending I can't talk when people come over and want to pray over me. You know, I just act like a mute and they fucking leave and they go on with their life," and she's like, "You know, I realized one day, if I took my sneakers off, I could ramp a step if it's just two steps. I could just put them there and I could roll up." Or I mean, there's a million examples.... Or like, because I think it's about prepping and about making the lists and it's also about whatever you prep for, there's always going to be the X Factor of "Oh, we didn't fucking expect that." And I think that's where a lot of prep falls apart is people have their "Dream Bunker." They're like, "Oh, okay, I know exactly what the threats are going to be." And then of course, it doesn't fucking happen that way. I really hope I can swear on your show. **Margaret ** 21:46 You can. Don't worry. **Leah ** 21:47 Great. So, I mean, one example I could give is I'm remembering at, you know, a Sins show when we were in rehearsal, where everyone drove over from Oakland in Patty's wheelchair accessible van, and then the ramp broken wouldn't unfold. So we just were like, alright, who do we know who has welding equipment? Who do we know has lumber? Like, I think we ended up going to a bike repair shop and then they had tools. And then we're like, okay, we'll just bring the rehearsal into the van and do it that way. Like, you have to be innovative. And that's a muscle that I think society doesn't teach you to flex and that often, I think that even people who.... I think there can be a lot of eugenics in prep, you know, whether people are overtly fascist or not, there's a real belief of like, "Oh, only the strong and smart," --which looks a certain way-- "survive," and that "We should use rational thinking to make it all work out." And I think a lot of crip intelligence or wisdom is actually knowing that shit can go sideways 48 different ways and you have to adapt. And you have to just kind of be like, "Well, let's try this." So I think that's one thing. And I think, you know, one thing I'll say is, yeah, just speaking to kind of the reframing we were talking about, I think it's less like, "Oh, remember the people with canes," but, I mean, that's good, but also knowing that we're already doing it and that abled people actually have a shit ton to learn from us. But also, I mean, something.... I mean, the title of my last book is "The Future is Disabled," and it comes from something--it's not unique thinking to me--it's something that a lot of disabled people have been thinking and saying throughout the pandemic is that we were already at like a 30% disabled world minimum and we're pretty close--we're probably at majority disabled right now. Because what, 2% of the world didn't get Covid? Like, how many people have Long Covid? How many people have complex PTSD? We're all sick, crazy, and, you know, needing access equipment. Disability is not out there. It's in here. Like there's no such thing as doing prep that's like, "Oh, only the three Uber Mensch are gonna survive." Like fuck that. And that actually--I mean, sorry, this might be a side note, but a lot of people have probably seen The Last of Us. And I'm just gonna SPOILER ALERT it. You know that famous episode three of those two gay bear preppers in love? Yeah, I loved a lot about it. I was so pissed at the ending, which I'm just going to spoil. So you know, the more artsy, non-prep guy....[interrupted] **Margaret ** 21:47 Yeah, they don't survive. **Leah ** 22:47 Well, no, but like, not only did they not survive but one of them gets chronically ill. And I was just like, grinding my teeth because it's like, "Oh, he's in a wheelchair. Oh, his hand tremors." And then they end up deciding to both kill themselves rather than do anything else. And I was so furious at it because I was like, these are two people who are so innovative. They have figured out all kinds of problem solving. They have an entire small city for themselves. And it's all like, "Oh, no, he can't get up the stairs." And I'm like, really? There was no accessible ranch house you couldn't of fucking moved to? **Margaret ** 24:38 Or like build a bedroom on the fucking ground floor. **Leah ** 24:40 Or youcouldn't get meds? You couldn't? I mean, when his hand was shaking, it was like, "Oh, it's so sad. He's being fed." I'm like, there's tons.... First of all, it doesn't suck to be fed. A lot of things that seem like a fate worse than death are not when you're in them. And also, there's like all kinds of adaptive utensils that they could have fucking raided from medical supply if he wants to feed himself. Or I'm sorry, there's no cans of Ensure? They absolutely have power. They couldn't have made smoothies? Like, what the fuck is this? But beyond that--and I think that a lot of people who have talked about that episode did, I think, have some good analysis of it where, you know, the whole way they set up their prep was they were like, "Oh, it's just the two of us," and the one super prepper guy was like, "I don't even want friends to come over." And the other guy was like, "Hey, actually, we need to make alliances because there's things they have that we don't. And we also need more than just the two of us because I love you, but I'm gonna kill you." And I think that's something to think about is really moving away from the idea that just your little you know, the utopic queer rural community that so many fucking city queers fantasize about or, you know, lover are going to be enough, because it's not. So that actually leads me to, "I don't have community. Where the fuck do I get it?" And I'm like, yeah, that's super real. Right? And I think it's something I actually wrote about in "The Future is Disabled" is that I have people be like--when I write about different crip communities, just even when I talk about stuff on Facebook.... Like my friend, Graham Bach, it's going to be his second year death anniversary in like two weeks, and he was like, you know, white, psychiatric survivor, super poor, amazing sweetheart of a human being, he died.... I mean, he died in his, you know, rent to your income apartment because he was really afraid to go to the hospital and he had cardiac stuff going on. And he was an anarchist, he was amazing, kind, complicated human being. And, I was writing about, like.... I'm going to tell the story and there's a couple things I want to pull out of it. So I was writing about meeting Graham when I was in my early 20s through radical Mad people community, and somebody was reading it and was like "That sounds so great." And I was like, "Yeah, it wasn't utopic. Like, I had to yell back at Graham because he would scream at me and I'd be like, "Shut the fuck up!" Like, there was so many fights. There was so much racism. There were so many older white cis dudes who had electroshock who were jerky or gross, you know? And I guess that was the thing is, I was like, they're like, "Well, how did you find each other?" And I was like, it wasn't perfect. Also, it was very analog working class. Like my friend Lilith Finkler, who is an amazing Moroccan, Jewish, working-class queer femme psych survivor, she would just go to the donut shop where everybody poor hung out and would talk to everybody who wass there who wass crazy who no one wanted to talk to and be like, "Hey, do you want to come hang out at this meeting at the fucking legal clinic? We have a room. We have a snack plate. I'll give you tokens. Let's organize." So I think that's the first thing is that it's not--and I don't mean this in a finger-wagging way--it's not automatic. And also, one of the really big ways that community is often ableist, and that a lot of us get cut out from it, is that a lot of us who need it the most are not particularly easy to love in ableist neurotypical worldview. It's like we're cranky, we're wounded, we're in a bad mood, we're weird. So a lot of the time, I think it's thinking about, first of all, what's one step, one move you can take towards it. Like, can you make one fucking acquaintance and build it. And really think about what it would mean to build some kind of relationship. I think the other thing that I really want to highlight is that a lot of the communities that I see that keep each other alive, that I'm lucky to have been a part of making and being supported by in disabled community, they're not static and they're not perfect. Like, I have networks with people who piss me the fuck off and who, you know, I've sent 20 bucks to people who I'm just like, "I really don't like you, but I can see that you really don't have food," you know, and we're not going to be friends and we're not going to like each other, but I don't want you to die. And that's not...I mean, it's bigger.... There's also people who I'm like, "Okay, you're my ex-abuser. I'm not gonna give you $5. Someone else can give you $5. **Margaret ** 28:42 There's this person who puts a lot of their effort into talking shit on me on the internet and I...they're also broke and have a lot of chronic health issues and I send them money every month. And every now and then I'm like, could this like...could you stop talking shit now? **Leah ** 29:03 I think this is the thing sometimes is like, hey, how about this is the deal, like maybe just say "Thank you," or maybe just talk shit even like 20% less? Because you know, I'm really doing we keep us safe here. I just really want a "thank you." **Margaret ** 29:16 I don't want you to die. Like, I don't want you to starve to death, but I really wish you would be a little bit more open minded to people having different opinions on yours. **Leah ** 29:26 Oh yeah, nuance, right? Yeah, it'd be fucking nice. **Margaret ** 29:29 God forbid. Anyway. **Leah ** 29:31 No, it's good. I guess my TLDR would be to start where you are and start with "what's one thing you can do? What's one person you can reach out to?" And I think, you know, I don't know if this is true for everyone who reaches out to you and it's like, "Well, I don't have anybody," but I think that social media and online connectivity is a real double-edged sword because for some of us who are isolated, it can create both online communities that can sometimes become in-real-life community and, either way, can be sources of some community or support. But I think.... I mean, you know, I'm a Generation X'er and I've just seen social media get more and more chokehold and just turn into fucking the panopticon meets a mall, you know? [Margaret laughs] And I think it's hard because 12 years ago I was part of really early online disabled spaces, which were great because so many people were like, "Well, I'm so isolated in my small town or in my city," or "I can't leave bed, but this is great. I'm meeting with other people and we're building these connections and it's actually more accessible for me to be real about my stuff from like my bed with a heating pad." And now I just think it's so chokeholded that it's hard for us to find each other. So it's much more common for people to be like, "Wow, I'm seeing all these people who have millions of followers and a shiny brand and I just feel like even more of an isolated loser." And then at the same time, I think people are like, "Well, how did people meet each other before this?" And I was like, "Yeah, like, you go to the coffee shop or the donut shop. You put up a flier. You go to the library. You like, I don't know. I mean, I just remember people I met on the food stamps line, you know, when we got there at six in the morning. And not everything's gonna stick, but maybe something sticks. And I also think about like, I'm going back to 13 years ago in early Disability Justice community spaces where--I mean, I think back to [untranslatable] when I went back to Toronto--which, yeah, big city--but I remember I had so many people come to me and be like, "You're..."--because I was starting to be more out about disability, cuz I was like, "I'm in the Bay and there's these wild people who talk about it and they're not all white people." and so I have so many, especially Black and brown disabled femmes be like, "Hi, you don't really know me, but I have fibromyalgia too," or "I have Lupus too. And like, no one I know talks about that. How do you do it?" And I'm specifically thinking about this time that this person I'm no longer in touch with--but we used to be friends--who's like, you know, queer, brown nonbinary person was like, "Let's just have a meet up of other chronically ill femmes of color," which is how we were identifying a time, and it was four of us, four heating pads, a bottle of Advil, and just very tentatively starting to share things about our lives. And I was like, "Yeah, that was four people." But a lot of that hang out then rippled outward. And it was like, I think it's also important to be like, it's scary to build community. Some tools I want to shut out like, so Mia Mingus, who I mentioned before, she has a lot of really great writing on her blog Leaving Evidence and she created this tool a long time ago now--that some people might be familiar with but for folks who aren't--it's, you know, it's her tool that she calls Pod Mapping. And she actually created it as part of a collective she founded called the Bay Area Transformative Justice Collective that was working on doing transformative justice interventions into intimate violence, specifically childhood sexual abuse a lot of the time, and she had this framework that I find really helpful. She's like, "A lot of..." she was talking about in community accountability, transformative justice spaces and she made a really good point where she's like, "Sometimes we talk about like, 'Yeah, bring in the community. Like, everyone has a community.'" And she's like, "Most people don't have a fucking community, let alone one that can interview in childhood sexual abuse." So she created this tool where she's like, "Let's broaden the idea of what community is." Like, maybe it's that one cousin, that you only talk to once a year, but you could call them in a jam, or it's this hotline, or it is like, yeah, they're a weird church, but you really like their food banks. She's like, "You have to really bring in.... Like, start where you are and do the resource mapping we were talking about" I really liked that tool a lot as a place for people who are like, "What's my community?" because I think it's a big word and really being like, "What does that even mean to me?" and like, "What's one place that can start building it?" And I also want to shout out, Rebel Sydney Black, who's a friend of mine who passed this June, at the beginning of the pandemic, he created this tool called Pod Mapping for Mutual Aid that was specifically aimed at disabled folks who were trying to pod map during Covid--and we can provide the link and stuff like that--but I would say that those are two places to start and then I want to get to alternatives to lying down and dying. And then I'll stop. **Margaret ** 34:04 Okay, wait, wait, before we get to that I want to talk more about the building community thing. **Leah ** 34:08 Yeah, please. **Margaret ** 34:09 I think you brought up a lot of really interesting points. And one of the things that I really like about it, you know, talking about having like...you're broadening the idea of what counts as community, which I think is really useful. And one of the things I realized is that a lot of times when I was younger, I was like, "Y'all say 'community' and you just mean the people that you like," right? And that didn't make any sense to me. Community seems like the people where you have a shared interest, whether the shared interest is you live on the same block, or whether the shared interest is an identity, or whether the shared interest is an interest that you're trying to see change, or whatever. It doesn't mean people you like. It's a different thing. Friends are the people I like, right? Well, mostly. I'm just kidding. I love all of you. I mean, there's a lot of people I love that I don't always like. Anyway, so I don't know, and so I think that one of the things that stuck out with me about what you're gonna say and I want to highlight is the idea that--or maybe I'm misreading it--but like "pick issue to work" around seems like a good useful way. Especially if you struggle to just have friends, right? That's not like the thing that you're good at. But maybe there's a thing that you want to work on? Or having that meetup where it's like, oh, all the following people who have the following things in common, let's meet up and talk about it. Or honestly, activism is a really good way to meet people and work closely with people about things. And it doesn't necessarily have to mean these are now your friends. But they can be people where you rely on each other. And that doesn't have to be the same. I think about it a lot because I live in a fairly isolated and rural environment where there's not a lot of people around me who are culturally.... Whatever, there's not a lot of out, queer people where I live. There's not a lot of punks. And I'm like, that's okay. I talk to my actual neighbors instead. I mean, some of them, not all of them, but most of them, you know, they're who I would rely on in a crisis, because they're right there. It doesn't mean that we have the same ideas about a lot of stuff, you know? But we have similar ideas, like, "Let's not die," right? And so that's enough sometimes. Anyway, I just wanted to.... **Leah ** 36:12 No, I really appreciate it. And I mean that makes me kind of think about, when you were talking, I was like, yeah, you know, there's friends, there's communities, and then there's survival networks, which can include contacts, right? Because I just think about what would I do right now, if some should happened? And I was like, I've got long distance kin and long term friendships and relationships ofvarious kinds and I also have--because I moved to where I live, which is like semi-rural, but definitely more rural than where I've lived before--and I'm just like, yeah, I have a small number of friends. But there's like people who I know who I can...who are neighbors who like, maybe we don't know a shit ton about each other but I could be like, "Hey, this thing?" or "Hey, do you have water?" or, "Hey, let's do this." I think it's a lot about thinking about what are your goals? Is your goal intimacy? Is your goal survival? Is your goal friendship? Because you need different levels of trust and commonality depending on those things, right? I also think, and this is the thing too, I think something.... I think a lot of times because I've had people be like, "Well, I don't have community," also, I've heard that. And I think that a lot of times the context, I hear it in is people being like, "Well, I have care needs, but I don't have any community." So then there's also the really big thorny question of "need" and like being cared for is actually very complicated. It's very risky. It's very vulnerable. It's not safe a lot of the time. It may feel a lot easier to just be like, "I don't have any fucking needs." And so there's a lot, I will just say that there's a lot of unpacking that needs to do around like, "What would I need to be cared for? What are my lower risk needs that I need help with? What are my higher risk needs?" right? Like, there's people who I can.... There's some needs I have where I'm like, I don't need to trust you super, super deep politically or on an intimate level to let you do that. There are certain needs where I'm like, that's only going to be people where we've really built a lot of fucking trust because if this goes sideways you could really stuck with me. Right? And I think that when you're starting from nowhere, I think often where people get stuck is like, "Where I am feels like I have nobody and nothing. And I want to get to like the thing I've read about in your topic science fiction, where you know, it's Star Hawk and everybody loves each other. And how the fuck do I get from A to B." And I think the solution is like, yeah, you're not gonna get to fucking "Fifth Sacred Thing" right away--and that book is complicated. **Margaret ** 38:29 Yeah, It was very influential on my early.... **Leah ** 38:31 Oh yeah, when I was 18, I just wanted to fucking move there. And now I'm like, "Oh God, this is embarrassing. There's some shit in here." I'm like, "Wow, everybody's mixed race, but everyone's Black parents are dead." Wow. Cool. Nobody really thinks about race. I'm like, I'm gonna throw up. And like, you know, BDSM is just violent....Okay, sorry. We're not going to get into that. **Margaret ** 38:47 Oh my God, I don't remember that part. **Leah ** 38:49 Oh, yeah. No, where it's so violent. Like, "We're just loving." And I wrote a really no passion paper for school, because we actually had to read it in a college class I was in, and I was like, "Why are they not into leather sexuality?" And my professor was like, "Okay, 18 year old..." but yeah. **Margaret ** 39:04 I mean, legit. You 18 year old self had a legitimate critique. **Margaret ** 39:08 Yeah. **Leah ** 39:08 Yeah, no, there's a lot there. But, um, but jumping back, I guess it's just like, you know.... And I think this feels like disabled wisdom too, it's like, what can you do with the spoons or the capacity you have? Like, what's one move you can make that small? And then can you build on that? Yeah, but can I talk about alternatives to lying down and dying? **Leah ** 39:28 Yeah. Well, I think...I mean, this is the thing, is like, I'm a survivalist, but I'm not like anti-civilization in the ways that some people are. Like, I want meds, you know? And I think that's something that other crips I know talk about a lot, which is like, you know, we're really against this way that some people, including some people who would like align themselves with like Healing Justice who are like "We're like, oh, yeah, we just have to go back before colonialism and capitalism, and just everyone lived on herbs and it was great." and I was like, "Nah, bitch, I need surgery and meds." Like I want it all. Like, I love non-Western pre-colonial traditional healing. Absolutely. And I've had friends who died because they didn't get their surgeries on time. Like my friend LL died because nobody would give him a fucking kidney because they said he was too fat. And I'm just like, my good future involves.... I mean, and he's one of millions right? So like, my good future involves that we have surgical suites. And I'm just like, you know, honestly, also, a lot of times that worldview just seems so white to me, because I'm just like, listen, a lot of like, global south places figure out how to have field hospitals, right, in really dire and low-resource situations. So I'm sorry.... **Margaret ** 40:40 I mean, only Europoe's ever figured out surgery. No one else has done surgery until Europe showed up. [Said sarcastically implying the opposite] **Leah ** 40:45 Yeah, not fucking ever. [Also said sarcastically] **Margaret ** 40:46 Said the people who are like, "bite down stick and I'll saw your arm off." **Leah ** 40:49 Yeah, so I mean, I guess one thing I would just say is like, I would say that and I would say like, you know, really...I want to like lift up and encourage people to look at--and they can be hard to find--but look at cultures, look at organizing initiatives where people were like, "We can have our own ambulance, we can have our own like..." And when that's not there, to think about what it would mean to have medical care after the apocalypse, right? What would it mean to make hormones, make drugs, synthesize chemicals, and it's not impossible. I think that we're still in the in between of like, okay, we gotta figure out how to do that. But, um, you know, I'm thinking about, Ejeris Dixon, who's my friend and comrade, and, you know, we co-edited "Beyond Survival" together, which is a book we wrote that came out right at the beginning of the pandemic about stories and strategies from how people are actually trying to create safety without the cops. Ejeris always talks about how they were like, "Yeah, like, in Louisiana, you know, in the South, you know, like in the 50s, and 60s, and before I believe, there were all kinds of Black run ambulance and 911 services," because regular 911 wouldn't come to Black communities. Right? And they, I mean, something that I've heard them say a lot over the years is like, "We don't have the people's ambulance yet. But we could." And then it makes me also jump to some friends of mine who were in Seattle who were really active as street medic crew during the rebellions after George George Floyd was murdered by the police in, you know, 2020 in the summer, and specifically in, as some people remember, Seattle managed to have 16 square blocks break off from the city for a while, CHOP, Capitol Hill Organized Front. And so what people don't know is that the cops were like, "Okay, fuck you. We're not going to...If there's any 911 ambulance calls, we're not going to fucking let anyone go in there." So the street medic crew had to deal with a lot of really intense situations. And then after that, like a lot of us folks, like some folks were already nurses or EMTs and a lot of folks who were involved went to nursing school or EMT school and we're like--and I don't know where it's at now--but they were like, "We want to create,"--because right now in Seattle, there's, if somebody is having a crisis on the street, like a medical or a mental health crisis or an altered state crisis, there's no non-911 crisis response that you can call. There's either you go down the stairs to talk to somebody or there's the cops, right. And they were like, "We can get a van. We can get medical equipment from eBay." And you know, I don't know where they're at with that, but they were really organizing around like, "Yeah, we could get a defibrillator. We could get oxygen. We could get blood pressure cuffs. We could get fucking..." you know? And I think that that shit gets complicated in terms of insurance and regulation and the State and the medical industrial complex, but I want us to keep thinking about that. I also, and then I'll wrap up because we have other questions to get to, but it also makes me think about, I mean, I don't know if folks are familiar with Gretchen Felker Martin's amazing science fiction book "Manhunt," right, which is about.... **Margaret ** 43:50 I haven't read it yet. **Leah ** 43:52 It's so fucking good. Okay, so I won't give it away. But just for people who don't know, I'd say it's the one kind of gender sci-fi book where "Oh, a virus, you know, affects people with certain chromosomes or certain that dih-dah-dug that's not TERFy because it's a book that, you know, she's trans, and it's a book that centers trans women and nonbinary communities and there's like one or two trans masculine characters. But the two main trans femme, like trans women characters in the book, they're like, they have to, they're like, "Yeah, like, we're going on raids to get, you know, hormones, and, you know, different, like chemical drugs we need. And we're also figuring out how to synthesize them from herbs and different substances." And it's not easy. It's a struggle. But there are organized communities of trans women and allies that are fighting to do it. And I'm just like, yeah, and I mean, it's an amazingly well written book, and she's incredible, and I fucking loved it. And it's just beautifully written and really just--sorry, I won't gush too much but go read it, it's incredible--I just really also appreciated it because she was like, "Yeah, of course we're gonna get our hormones after the end of the world. Like of course it's possible." And I will also.... I have some criticisms of the ableism in it, but M.E. O'Brien and--fuck I'm forgetting the second author's name, but every you know, "Everything For Everyone," that book. I appreciated how in the good future society, they're like, "Our priority is making sure that insulin and chemical drugs and hormones are accessible and free to everybody." And I was like, I guess I would just push people towards there are ways of imagining the future where we can defeat capitalism but still have medical care of all kinds. We can have Reiki and acupuncture and we can also hormone surgery and transplants. And we might be doing it better because it's not controlled by fucking corporations and assholes. Sorry, that's my soapbox. Um, okay. I will say in terms of people being like, "That's really nice. But what about me?" I would be like, you know, I mean, right now in the war on trans America, there are so many people already who are like, "Yeah, I'm stockpiling meds. I like doing meds trading." I would say it goes back to what we started about, which is like, "Okay, what are your needs? What are the things that you're worried will not be there if the world ends?" Right? And we also need to recognize that the world's already ending and it's ended for some of us a bunch of times already. But I would be like, make that list and then really be like, "Alright, how do I get it?" You know, and if I can't specifically get it, are there like backups that I can get? And it may be stuff that you can research on your own. It also might be stuff where it's like, "Okay, are there trans [untranslatable], disability justice organizations, nationally, globally, locally, that you can hit up and be like, "What are folks thoughts about this? Are there ways that we can resource share?" Because I think it's about pills. I think it's also about durable medical equipment. So in terms of stuff that requires power to live, I think about generators and I think about generator shares. And I think about things like...there's a story when Hurricane Sandy hit New York 10 years ago, there were a whole bunch of us where...there's a guy Nick who's in community who, physically disabled guy, 13th floor, accessible apartment, you know, the lights went out, you know, really dependent on electricity to change out the batteries on his ventilator. There's a whole crew of disabled folks, like people walked up and down those fucking stairs every eight hours to take the spent batteries, figured out, "Hey, you know, what still has power, the fucking fire department." People were walking down recharging the batteries every eight hours. And it was allies, it was ambulatory, it was disabled people who could walk. It was fucking hard. But people were like, we're not.... Nick and his friends were like, "We're not just going to die. We're needed." So I wanna shoutout that and just for possibility modeling, I really want to, one other place I want to shout out, is an org that used to be known as Portlight but was now known as the Center for Inclusive Disaster Strategies, which is a disabled-led organization that is about like, yeah, when there's a climate or other disaster, they figure out ways of getting like accessible fucking evacuation methods to places because they know...we know, there's millions of examples of people who are just left to die in nursing homes or like, "Oops, the bus doesn't have a ramp," or, you know, I really want to name that during Katrina, some people might know about, you know, the situation with the nursing home that was there were a lot of folks who were wheelchair users or had high care needs were fucking killed by medical staff because the medical staff were like, "We're gonna actually euthanize these folks without their knowledge or consent." [Margaret exclaims] Yeah, no, there was actually a movie on HBO about it I think semi recently. Because "that's easier than figuring out how to fucking get people in the medivac ," right? Yeah, and so the Partnership for Inclusive Disaster Strategies, I'm still getting to know them, but I have friends who are involved and they're like, "Yeah, we're aware this is an issue." So yeah, let's work with the fucking Cajun fucking Navy to like make sure that you can get folks with different bodies onto evac boats. Like let's figure out what disabled survival looks like. And I will just say, and this is the last thing I swear, for me, I mean, we all know water is important. Like, I can't lift 54 pounds. Guess what? So can't--which is, you know, a seven gallon right, like a five or seven gallon whatever--I'm just like, yeah, so I can actually have smaller jugs of water that I can lift. So yeah, I have a bug out plan, but I also have a real Shelter in Place plan because I'm just like, yeah, my apartment's accessible for me. So yeah, I got a shit ton of water right here and I'll be good for a while. And I also have a plan B for.... Okay, there's...I've got my filtration equipment, so when that runs out, I'm close to some water sources where I can go and I can filter that shit. And that's me thinking about what works for my body. Think about what works for yours and then plan out from that. Okay, I'll really stop talking now. **Margaret ** 49:44 No, no, but there's so much there. Even just like to go to the weight of water, right? The thing that I ran across that I'm like--I'm reasonably able-bodied and such like that, right--but I live alone and so obviously there's this specific thing where like.... Well, one, I mean, abledness is always a temporary position.... **Leah ** 50:04 Yeah, you're going to get disabled, you're gonna get sick and disabled. **Margaret ** 50:07 Like it literally happens to--unless you, I don't know, die very quickly, very suddenly, probably violently, you're gonna go through a period of disability in your life, you know? And so my argument is that machismo is anti-prepping. And one of the ways that I would say is that like, there's now, I think.... Okay, so cement bags, they come in 50 pound bags traditionally, right? But now there's more and more, I think, there seems to be more and more 30 pound bags, right? And I used to be like, "Oh, whatever, I can lift a 50 pound bag. So I should carry the 50 pound bag." And then I'm like, well, it was not a helpful way to look at it. It is far better for me to just have 30 pound bags of cement because they're easier to carry and I'll get tired less. And I, you know, at the time that I was pouring these bags, I lived up a hill about probably the equivalent of a seven storey walk up to this cabin that I was building, right. And so I had to carry each and every one. It was way nicer that I carry 30 pound bags. And if your preparedness doesn't include the fact that your level of ability will change in different situations, then it's not very good preparedness. And and so like, I don't know, I mean, like most of my water jugs are four or five gallon jugs. I use jerry cans. I think most of them are five gallon. And I hate the six gallon ones and the seven gallon ones. They're just heavy and annoying. And it's like I can give lift them but there's no reason why I should. Unless I'm specifically working on lifting weights. And then the other thing that you talked about that I really think about a lot, you know, is this idea, of does your version of disaster mean that every doctor dies? Or like, does your version of disaster mean everyone who's ever made insulin dies? Like, it's possible. Sure, you could have 90...if almost everyone on Earth dies, then everything is a little different. But most disasters don't actually..... Most disasters destroy ways of living and large numbers of people, but not the majority of people write. Most people survive most disasters. And, people are like, "Well, our organizational systems are what produce insulin," and like, no, people produce insulin and they use organizational systems with which to do it. But different organizational systems can also produce insulin. Like different organizational systems can use the same infrastructure sometimes and make the things that we rely on. And it came up with this like whole thing where people on the internet were like, "Ah, if you're an anarchist, you hate disabled people because in anarchy, you can't have insulin," **Leah ** 50:28 That's gross. **Margaret ** 52:40 It is a complete misunderstanding of anarchism. It is not a lack of organization, it is a different type of organization. **Leah ** 52:46 Anarchy is responsibility. **Margaret ** 52:48 Yes, totally. **Leah ** 52:50 Sorry, sorry. **Margaret ** 52:52 That's why people don't like it. People are afraid of it because they actually have to.... It's the accepting no one is coming to save us except us. You know? No, I love that way of framing and it also annoys anarchists when you tell them this too. **Leah ** 53:07 Okay, well, I mean, you know, so I worked at Modern Times books, which was, you know, is no longer around, but was a long time anarchists and anti authoritarian radical bookstore in the Bay. And we had the only public toilet in all of the Mission because everybody else was like, "No, you gotta buy something." and in my interview, they're like, "How will you make the store better?" And I was like, "I will make the bathroom not smell horrible." Because, you know, it was just like a bust, everyone was pissing in there. And so I taped up a sign that said "Anarchy is responsibility. If you spray the fucking toilet with urine, please wipe it up. Together we can have a toilet." And somebody called me out and was like, "That's capitalist." And I was like, "No, just wipe your piss up or we're not gonna make the revolution. Like, come on." But yeah, they got pissed at me about that. [Both laugh] But yeah, I mean, I think that's a really good point. And it's like, you know, I mean, I think that it does point to, you know, I think a structural problem in a lot of our movements, which is like, yeah, we don't we need more people who know some basics of chemistry and can synthesize stuff. Like, that's, you know, we need more people who've gone to some kind of science or engineering school who can figure out how sewage works and how you synthesize insulin and how you synthesize hormones and like, basic surgery. And I think there's a lot of hopefulness because I--maybe it's just the folks I hang out with--but I have a fair number of friends who are like, "Yeah, I'm gonna be a nurse practitioner. I can give you an abortion. I can sew up your wound. I can help you figure out this thing." And I'd love for there to be more of us who can go to PA school or

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