Podcasts about cultural practice

Language is impossibly complicated. And yet, nearly everyone uses it with ease. Where does it come from? In this episode we look for clues to answer this question in the story of the world's newest language, how it arose, and what it tells us about what it means to be human. ReferencesBlunden, A. (1990). The invention of Nicaraguan sign language . Www.ethicalpolitics.org. https://www.ethicalpolitics.org/ablunden/works/nsl.htmBouchard, K. (2018, March 19). Seeing the signs: Renowned USM professor reflects on life-changing language discovery. Portland Press Herald. https://www.pressherald.com/2018/03/19/seeing-the-signs-renowned-usm-professor-reflects-on-life-changing-language-discovery/Fitch, W. T. (2010). The evolution of language. Cambridge University Press.Niemann, S., Greenstein, D., & David, D. (2025). Women's health can damage or protect children's hearing . In Hesperian.org. Hesperian Health Guides. https://en.hesperian.org/hhg/Helping_Children_Who_Are_Deaf:Women%E2%80%99s_health_can_damage_or_protect_children%E2%80%99s_hearingPolich, L. (2005). Chapter 11. The diagnosis of deafness in Nicaragua. In Diagnosis as Cultural Practice (pp. 223–240). Mouton de Gruyter. https://doi.org/10.1515/9783110199802.223Wikipedia Contributors. (2019, November 11). Nicaraguan sign language. Wikipedia. https://en.wikipedia.org/wiki/Nicaraguan_Sign_LanguageWikipedia Contributors. (2025a, January 26). Judy Shepard-Kegl. Wikipedia; Wikimedia Foundation. https://en.wikipedia.org/wiki/Judy_Shepard-KeglWikipedia Contributors. (2025b, March 30). Education in Nicaragua. Wikipedia; Wikimedia Foundation. https://en.wikipedia.org/wiki/Education_in_Nicaragua#Education_during_the_Sandinista_eraWikipedia Contributors. (2025c, April 9). Nicaraguan Revolution. Wikipedia; Wikimedia Foundation. https://en.wikipedia.org/wiki/Nicaraguan_Revolution#ContrasWilliams, L. (2018). Nicaraguan Sign Language - Language Stories: Episode 11║Lindsay Does Languages Video [YouTube Video]. In YouTube. https://www.youtube.com/watch?v=t6Wtwz1P7zI

La repetición está presente desde las ceremonias tribales hasta los viejos salones; se practicaba en la Edad Media y es básica, en forma de loop, en la música electrónica. La repetición hace que los sonidos nos parezcan más familiares: nos vuelve participantes activos._____Has escuchado“24 Loops”. YouTube Vídeo. Publicado por Pierre Jodlowski, 25 de noviembre de 2013 [Pieza para cuatro percusiones y loops]: https://www.youtube.com/watch?v=Xz1fPotRK_8“C. P. E. Bach Clavier-Sonate mit veränderten Reprisen, Allegro”. YouTube Vídeo. Publicado por Yvonne Ritter, 13 de abril de 2020: https://www.youtube.com/watch?v=U79uInZEZOoIt's Gonna Rain (1965) / Steve Reich. Columbia Masterworks (1968)O Superman (1982) / Laurie Anderson. Warner Bros (1982)_____Selección bibliográficaARBO, Alessandro, Perspectives de l'esthétique musicale: entre théorie et histoire. L'Harmattan, 2007*CORNÚ, Adriana, “La repetición en música: un intento de superar las limitaciones de la teoría tradicional”. Revista del Instituto Superior de Música de la Universidad Nacional de Litoral, n.º 6 (1999), pp. 37-55DENNIS, Brian, “Repetitive and Systemic Music”. The Musical Times, vol. 115, n.º 1582 (1974), pp. 1036-1038*DOFFMAN, Mark, Emily Payne y Toby Young (eds.), The Oxford Handbook of Time and Music. Oxford University Press, 2022*FINK, Robert, Repeating Ourselves: American Minimal Music as Cultural Practice. University of California Press, 2005MARGULIS, Elizabeth Hellmuth,“Silences in Music Are Musical Not Silent: An Exploratory Study of Context Effects on the Experience of Musical Pauses”. Music Perception: An Interdisciplinary Journal, vol. 24, n.º 5 (2007), pp. 485-506*—, On Repeat: How Music Plays the Mind. Oxford University Press, 2014—, “Repetition”. En: The Oxford Handbook of Critical Concepts in Music Theory. Editado por Alexander Rehding y Steven Rings. Oxford University Press, 2019*METZER, David, “Modern Silence”. The Journal of Musicology, vol. 23, n.º 3 (2006), pp. 331-374*MIDDLETON, Richard, “‘Play It Again Sam': Some Notes on the Productivity of Repetition in Popular Music”. Popular Music, vol. 3 (1983), pp. 235-270*NACENTA, Lluís, A la escucha de la repetición musical. Tesis doctoral, Universitat Pompeu Fabra, 2014O'BRIEN, Kerry y William Robin. On Minimalism: Documenting a Musical Movement. University of California Press, 2023*PHILIP, Robert, Performing Music in the Age of Recording. Yale University Press, 2004*PHILLIPS, Michele y Matthew Sergeant (eds.), Music and Time: Psychology, Philosophy, Practice. Boydell Press, 2022RAHN, John, “Repetition”. Contemporary Music Review, vol. 7 (1993), pp. 49-57SULLIVAN, Tim, “Motivic Patterns, Repetition, and Formal Structures in Galina Ustvolskaya's Sonata for Violin and Piano”. En: Analytical essays on music by women composers: concert music, 1900-1960. Editado por Laurel Parsons. Duke University Press, 2022*WARBURTON, Dan, “A Working Terminology for Minimal Music”. Intégral, vol. 2 (1988), pp. 135-159* *Documento disponible para su consulta en la Sala de Nuevas Músicas de la Biblioteca y Centro de Apoyo a la Investigación de la Fundación Juan March

Our shared interests are evolving to become a bigger part of how we seek belonging and acceptance in today's world. So, with this being the case, how do brands go about the job of connecting into communities of shared interest – without looking like an outsider? And what does this mean for the practice of marketing? In this episode, Andrew is joined by Lindsey Horne, Behavioural Insights Director and Laura Mulcahy, Head of Cultural Practice. Explore more of the research at: theresearchagency.com/connection Hosted on Acast. See acast.com/privacy for more information.

Here are the show notes for Episode 55, in which Jacky and Dan talk to Dr Christian Ilbury, Lecturer in Linguistics and English Language in the School of Philosophy, Psychology and Language Sciences at The University of Edinburgh about: Being an online linguist Social media and language change - why it's complicated Why ‘slang' is an unhelpful word and why ‘internet vernacular' is a better term for the kind of styles he is looking at Appropriation and diffusion Media discourses about young people, online language and technology His continuing work on MLE and why ‘MLE' is still a useful term Christian's University of Edinburgh profile: https://www.ed.ac.uk/profile/christian-ilbury Some appearances in the media that we mention: https://theconversation.com/theyre-serving-what-how-the-c-word-went-from-camp-to-internet-mainstream-210214  https://www.theguardian.com/music/2024/apr/09/bait-ting-certi-how-uk-rap-changed-the-language-of-the-nation “You have quite a long history of British vernaculars being exported through British cultural forms,” says Christian Ilbury, a lecturer in sociolinguistics at the University of Edinburgh – from Scouse accents with the Beatles to Arctic Monkeys and the presence of industrial working-class accents in indie music. “Grime essentially became the vehicle in which we perceived MLE.” Those kids in suburban England, he says, “don't speak this variety because of where they grew up. They're using it to align with a cultural orientation that they appreciate.” https://linguistics-research-digest.blogspot.com/2019/10/  ‘Slay', ‘yaas kween', ‘squad' – if you're a keen social media, you might be familiar with some of these words. Originally from African American Vernacular English (AAVE) – a variety of English spoken by some Black Americans – these terms have quickly become part of the internet grammar. But, how and why have these terms entered our lexicon and what does the use of AAVE in internet communication mean? This and other questions are examined by Christian Ilbury in his recent paper. The episode of Lexis that we mention in which we interviewed Shivonne gates about MLE in East London:  https://open.spotify.com/episode/5leNPWkgQTMFzZ2UHRktnC  Christian's book recommendation can be found here:  Homegirls: Language and Cultural Practice among Latina Youth Gangs. London: Blackwell. “In this ground-breaking new book on the Norteña and Sureña (North/South) youth gang dynamic, cultural anthropologist and linguist Norma Mendoza-Denton looks at the daily lives of young Latinas and their innovative use of speech, bodily practices, and symbolic exchanges that signal their gang affiliations and ideologies. Her engrossing ethnographic and sociolinguistic study reveals the connection of language behavior and other symbolic practices among Latina gang girls in California,and their connections to larger social processes of nationalism,racial/ethnic consciousness, and gender identity.” https://www.norma-mendoza-denton.com/books  Contributors Lisa Casey  blog: https://livingthroughlanguage.wordpress.com/ & Twitter: Language Debates (@LanguageDebates) Dan Clayton  blog: EngLangBlog & Twitter: EngLangBlog (@EngLangBlog) Bluesky: https://bsky.app/profile/englangblog.bsky.social  Jacky Glancey  Twitter: https://twitter.com/JackyGlancey Raj Rana Matthew Butler  Twitter: https://twitter.com/MatthewbutlerCA  Music: Serge Quadrado - Cool Guys  Cool Guys by Serge Quadrado is licensed under a Attribution-NonCommercial 4.0 International License. From the Free Music Archive: https://freemusicarchive.org/music/serge-quadrado/urban/cool-guys 

Compositor californiano marcado por las ideas de John Cage, los experimentos de La Monte Young, las improvisaciones del jazzy la música clásica de la India, crea en 1964“InC”(“Endo”) una de las obras más influyentes del minimalismo y de la música norteamericana del siglo XX._____Has escuchadoIn C (1964). Buffalo Center of the Creative and Performing Arts Ensemble; Terry Riley, saxofón. Columbia Masterworks (1968)Music for the Gift. Part 1 (1963). Chet Baker y Luis Fuentes, trompetas; Luigi Trussardi, bajo; George Solano, batería; John Graham, voz; Terry Riley, tape. Elision Fields (2007)Songs for the Ten Voices of the Two Prophets. Eastern Man (1982). Terry Riley, sintetizador prophet 5. Kuckuck (1983)The Harp of New Albion. The Orchestra of Tao (1986). Terry Riley, piano. Celestial Harmonies (1986)_____Selección bibliográficaCARL, Robert, Terry Riley's In C. Oxford University Press, 2009FINK, Robert, Repeating Ourselves. American Minimal Music as Cultural Practice. University of California, 2005GIRARD, Johan, Répétitions: L'esthétique musicale de Terry Riley, Steve Reich et Philip Glass. Presses Sorbonne Nouvelle, 2010HEISINGER, Brent, “American Minimalism in the 1980s”. American Music, vol. 7, n.º 4 (1989), pp. 430-447*MARGASAK, Peter, “Terry Riley's The Gift”. Sound American: The Change Issue, n.º 21, consultada el 20 de junio de 2023: [Web]*O'BRIEN, Kerry y William Robin (eds.), On minimalism: Documenting a Musical Movement. University of California Press, 2023*OBRIST, Hans-Ulrich, “Terry Riley”. En: A Brief History of New Music. JRP/Ringier; Les Presses du Réel, 2015*POTTER, Keith, Four Musical Minimalists: La Monte Young, Terry Riley, Philip Glass. Cambridge University Press, 2002*REED, S. Alexander, “In C on Its Own Terms: A Statistical and Historical View”. Perspectives of New Music, vol. 49, n.º 1 (2011), pp. 47-78*STRICKLAND, Edward, American Composers: Dialogues on Contemporary Music. Indiana University Press, 1991 *Documento disponible para su consulta en la Sala de Nuevas Músicas de la Biblioteca y Centro de Apoyo a la Investigación de la Fundación Juan March

Cultural practices are fundamental to maintaining a sense of cultural heritage, to feeling connected to one's culture and ancestry. This is also why there was such a widespread effort in this country to strip indigenous people of those practices. In honor of Indigenous Peoples Day, we'll reflect on the work of this month's share the plate organization, Ohketeau.

Welcome to another edition of MoT! The place where theology matters because everything, all of life is a matter of theology. MoT is a podcast production that stands for the sufficiency of Scripture seeks to show how scripture applies to everything we think, say, and do.  In today's episode, Drew and Chris take a deep dive, and we mean DEEP dive (just over 3 hours) into the topic of head coverings from 1 Corinthians 11:2-16. This topic is addressed by the Apostle Paul (using 15 verses), under the divine inspiration of the Holy Spirit, in a very specific way for a very specific reason. This is not a difficult passage to interpret and apply however there are many who steer clear of it or do not take a consistent and/or balanced hermeneutical approach to exegeting the text. Our goal is to address this from all sides using Scripture, church history, the culture in Corinth at the time, and our culture today. So, grab your copy of God's Word and strap in as we dive into 1 Corinthians 11, a whole host of other passages, church history, the culture, and beyond in the latest from MoT, "Head Coverings: Cultural Practice or Biblical Ordinance?" Learn more about and read the Legacy Standard Bible for free at read.lsbible.org Order your copy of the Legacy Standard bible or NASB 95 at  316publishing.com nasb.literalword.com (Read the NASB 95) Visit the MoT Store on Bonfire HERE Get your copy of "Head Covering: A Forgotten Christian Practice for Modern Times" by Jeremy Gardiner HERE Support this podcast: https://podcasters.spotify.com/pod/show/matteroftheology/support

Welcome to another edition of MoT! The place where theology matters because everything, all of life is a matter of theology. MoT is a podcast production that stands for the sufficiency of Scripture seeks to show how scripture applies to everything we think, say, and do.  In today's episode, Drew and Chris take a deep dive, and we mean DEEP dive (just over 3 hours) into the topic of head coverings from 1 Corinthians 11:2-16. This topic is addressed by the Apostle Paul (using 15 verses), under the divine inspiration of the Holy Spirit, in a very specific way for a very specific reason. This is not a difficult passage to interpret and apply however there are many who steer clear of it or do not take a consistent and/or balanced hermeneutical approach to exegeting the text. Our goal is to address this from all sides using Scripture, church history, the culture in Corinth at the time, and our culture today. So, grab your copy of God's Word and strap in as we dive into 1 Corinthians 11, a whole host of other passages, church history, the culture, and beyond in the latest from MoT, "Head Coverings: Cultural Practice or Biblical Ordinance?" Learn more about and read the Legacy Standard Bible for free at read.lsbible.org Order your copy of the Legacy Standard bible or NASB 95 at  316publishing.com nasb.literalword.com (Read the NASB 95) Visit the MoT Store on Bonfire HERE Get your copy of "Head Covering: A Forgotten Christian Practice for Modern Times" by Jeremy Gardiner HERE --- Support this podcast: https://podcasters.spotify.com/pod/show/matteroftheology/support

In this episode, we are sharing the highlights from our webinar 'Women's Health' with Dr. Jonathan White and Professor Helen Reese Leahy. Dr. Jonathan White is an Obstetrician and Gynecologist, and the Overcoming MS Medical Advisor. Helen lives with primary progressive MS and follows the Overcoming MS Program. They discuss how MS impacts women's health and how the Overcoming MS Program can best support women's health. This webinar was recorded as part of our Finding Hope with Overcoming MS webinar series. You can watch the whole webinar here or the podcast highlights on YouTube here. Keep reading for the key episode takeaways and bio information. Topics and Timestamps 00:56 The history of MS research with women (Helen) 08:15 Reproductive health and MS (Jonathan) 26:14 The Overcoming MS Program supports every aspect of women's health (Helen) 34:51 Hormone replacement therapy (HRT) (Jonathan) 47:41 Bladder issues with MS and menopause (Jonathan and Helen) Selected Key Takeaways More research is needed to understand menopause's effect on MS "The age group with the highest number of people with MS, both men and women, is now 55-64. So, if you think about [that] within the general MS population, that's obviously a very large number of women who are either menopausal or postmenopausal. But very, very few women over 50 are recruited for MS research trials. So, the effects of menopause on the lives and health of women with MS, in general, but also our response to DMTs, are very under-researched.” Inflammation can worsen as we age "‘Inflammageing' is a fascinating term, which essentially [means] the inflamed pro-inflammatory state that people exhibit as they get older. A lot of the conditions we develop at an older age are actually due to increases in inflammation. Cardiovascular disease would be a prime example of that. We think that ‘Inflammageing' certainly has a role in this mixed bag of MS and menopause, and of course, the obvious one to look at will be oestrogen deficiency. Is HRT beneficial if you have MS? There is some evidence to say that it is. But again, none of those studies are prospective or randomised control studies. Generally speaking, it's not recommended to take HRT just by virtue of having MS to protect yourself. But there's certainly no reason not to [take it] because you have MS [and menopause] and in fact, it may be beneficial. So, if you are struggling with the hot flushes, the night sweats or your urinary symptoms have suddenly got much worse, you're suffering from vaginal dryness, then this is definitely a conversation that you should be having." Bladder issues are common with MS and menopause "With MS in both males and females, we think up to between 50% and 70% of people will have bladder dysfunction due to MS. That usually affects the nerves supplying the muscle, the detrusor muscle in the bladder wall, and makes it very irritable, so it tends to be an overactive or urge problem with MS. That's also very common post-menopause, and the mechanism isn't entirely the same, but it does share a bit, and part of it is certainly to do with oestrogen deficiency." More Info and Links: Watch the original webinar Listen to Dr. Jonathan White's podcast episodes on Season 1 Episode 2, Season 2 Episode 19, Season 3 Episode 32, the 100th Episode, and Season 4 Episode 64 Read the paper‘Effects of Menopause in Women with Multiple Sclerosis: An Evidence-Based Review' Read ‘Does menopause influence the course of MS?' Visit the Royal College of Obstetricians, Gynecologists' women's health hub The British Menopause Society The Women's Health Concern Listen to Dr. Rachael Hunter discuss the 3Ps on S4E67 Listen to Helen's podcast episode about Primary Progressive MS New to Overcoming MS? Visit our introductory page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook https://www.facebook.com/OvercomingMS/ Instagram https://www.instagram.com/overcomingms/ YouTube https://www.youtube.com/overcomingms Pinterest https://www.pinterest.com/overcomingms/ Website https://overcomingms.org/ Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us:  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS. Dr. Jonathan White's Bio Career: Jonathan went to the University of Glasgow Medical School, graduating in 2008 (MBChB). He completed a further five years of training in Obstetrics and Gynecology and is a member of the Royal College of Obstetricians & Gynecologists (MRCOG). He works at the Causeway Hospital, Coleraine and has a special interest in early pregnancy and recurrent pregnancy loss. In April 2022, Jonathan was awarded “Doctor of the Year” at the inaugural Northern Ireland Health and Social Care Awards. He contributed to the ‘Overcoming Multiple Sclerosis Handbook: Roadmap to Good Health', by writing the chapter about medication. Overcoming MS and personal life: Jonathan was diagnosed with RRMS in October 2015 and has been following the Overcoming MS Program ever since.  Dr. White assists Overcoming MS as a medical advisor and event facilitator. He lives on the North Coast of Northern Ireland, is married to Jenny and father to Angus and Struan. His interests include the great outdoors, cycling and running (reluctantly), reading, rugby, film and spending time with his family. Professor Helen Rees Leahy's bio: MS and Overcoming MS Helen was diagnosed with Primary Progressive MS in 1997 when she was 37 years old. Being ineligible for any Disease Modifying Treatment (DMT) within the UK National Health Service, she began to explore holistic approaches to managing her condition. She discovered Overcoming MS in 2008 and has followed the Program ever since. She was previously a Trustee for Overcoming MS. Personal life and career Helen lives in Conwy, a small, medieval town in North Wales. In 2017, she took medical retirement from the University of Manchester where she was a Professor in the Department of Art History and Cultural Practice. As an Emerita Professor, Helen continues to research and teach doctoral students. She also spends time hand-weaving and learning Welsh, the language of her ancestors.

.player4482 .plyr__controls, .player4482 .StampAudioPlayerSkin{ border-radius: px; overflow: hidden; } .player4482{ margin: 0 auto; } .player4482 .plyr__controls .plyr__controls { border-radius: none; overflow: visible; } .skin_default .player4482 .plyr__controls { overflow: visible; } Your browser does not support the audio element.  In this episode, Dr. Sandy Smith-Nonini interviews Dr. Tom Love, professor emeritus at Linfield College. Dr. Love discusses why energy is so important in studies of the climate transition, and why the field of anthropology is well-suited to the study of energy in terms of the field's history and premise. Economic anthropologists, in particular, are well positioned to explore the inter-disciplinarity of energy and the economy. Sandy also drew on Tom's past explorations of peak oil and more recently his involvement with colleagues in ongoing work in net energy (Energy Returned on Energy Invested) to interrogate why these debates remain highly relevant to the climate transition. Finally, Sandy talked with her guest about his most recent work as a co-founder and developer with other colleagues of the Planetary Limits Academic Network (PLAN) website – which is providing a forum for these discussions and for public scholarship. Guest Bio: Tom is emeritus professor of anthropology at Linfield College, McMinnville, Oregon. He co-edited the Cultures of Energy reader with Sarah Strauss and Stephanie Rupp (Left Coast Press, 2013, 2016) and authored The Independent Republic of Arequipa (University of Texas Press, 2017). He co-edited with Cindy Isenhour a 2016 issue of Economic Anthropology on “Energy and Economy.” Tom has done field research on solar energy in rural Peru. He is a founding organizer with other scholars of PLAN –the Planetary Limits Academic Network website: https://planetarylimits.net/user/tomlove/. Music: Borough by Molerider at Blue Dot Sessions (www.sessions.blue). References: Campbell, C. and J. Laherrere. (1998). “The End of Cheap Oil,” Scientific American, Vol. 278, No. 3, 78- 83. Graeber, D. and D. Wengrow. (2021). The Dawn of Everything: A New History of Humanity. Farrar, Straus and Giroux. Hornborg, Alf. (2016). Global Magic: Technologies of Appropriation from Ancient Rome to Wal Street. Palgrave. _____ & C. Isenhour. (2016). Energy and Economy: Re-cognizing High Energy Modernity as an Historical Period. In Love & Isenhour, eds., Economic Anthropology, 3:1 “Energy and Economy.” _____ & D. Murphy (2016). Implications of Net Energy for the Food-Energy-Water Nexus; An NSF-funded workshop, Linfield College, 14-16 January. Mitchell, T. (2011). Carbon Democracy: Political Power in the Age of Oil. Verso. Strauss, S., S. Rupp and T. Love, eds. (2013/2016) Cultures of Energy: Power, Practices, Technologies. London: Routledge. Murphy, D.J.; et. al. (2022). Energy Return on Investment of Major Energy Carriers. Sustainability, 14, 7098. Wilhite, H. (2013/2016). Energy Consumption as Cultural Practice. In Strauss, S., S. Rupp and T. Love, eds. Cultures of Energy: Power, Practices, Technologies. London: Routledge. Wilk, R. and Cliggitt, L. (2007/2008). Economy and Cultures, 2nd Ed. Taylor and Francis.

In this episode, we are sharing the highlights from our webinar ‘Living Well with Progressive MS' with Dr Phil Startin and Professor Helen Reese Leahy. Both Phil and Helen have progressive MS and follow the Overcoming MS Program. They discuss what progressive MS is and how the Overcoming MS Program can benefit people with progressive MS. This webinar was recorded in July 2021 as part of our Finding Hope with Overcoming MS webinar series. You can watch the whole webinar here or the podcast highlights on YouTube here. Keep reading for the key episode takeaways and bio information. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you're new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Selected Key Takeaways Overcoming MS is for every type of MS Helen Rees Leahy: “Overcoming MS is really determined to be an inclusive space in which everybody's experience of MS is acknowledged and honoured. So, though we [people with progressive MS] may be small in number, our voice is growing, and we're very much being heard within the Overcoming MS conversation.” Exercise is still important with progressive MS but be gentle and kind with yourself Phil Startin: “Be kind to yourself, try not to judge [and] compare what you can do now to what you used to be able to do. I've certainly spoken to people who refuse to exercise saying exercising reminds them of what they now can't do and that's really upsetting. We still need goals but hold them more lightly [and] more gently.” Think of the Overcoming MS Program as a toolkit rather than a set of rules Helen Reese Leahy: “I started following the Overcoming MS Program in the 2000s. It's become a framework for my daily life. I've never been eligible for any disease-modifying therapy, so in a sense, Overcoming MS is my health care programme. I feel very empowered by following the Program. I am taking responsibility and managing my own health to the best of my ability. I always regard Overcoming MS not as a book of rules, but as a kind of toolkit and to be honest, I really enjoy following the Program.” More info and helpful links: Watch the original webinar here Try yoga with Overcoming MS facilitator Veronique Gauthier-Simmons here Read more about Progressive MS Join the Progressive MS Circle New to Overcoming MS? Visit our introductory page Visit the Overcoming MS website Follow us on social media: Facebook Instagram Twitter YouTube Pinterest Don't miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episode here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here. Dr. Phil Startin's bio: Career and Overcoming MS: After a DPhil in Quantum Physics, Phil left his academic roots for a more peripatetic career in management consulting, initially with Price Waterhouse. After years of travelling around the world for both work and pleasure, including a two-year assignment in Geneva, he was diagnosed with Primary Progressive MS (PPMS) in 2007.   Phil discovered Overcoming MS in 2011, and coupled with his earlier discovery of mindfulness meditation, it awakened a whole new area in his life. With training and supervision from Bangor University, he now teaches an eight-week mindfulness-based stress reduction (MBSR) course to people with MS and to the general community on a pro-bono basis. He is also a trustee for MS-UK.   Personal life: Phil lives in Arrochar, Scotland with his American wife, Cristina, whom he met over a weekend at the Jazz Fest in New Orleans. Phil's completely convinced that the Overcoming MS Program and mindfulness have positively affected the trajectory of his condition Professor Helen Rees Leahy's bio: MS and Overcoming MS: Helen was diagnosed with Primary Progressive MS in 1997 when she was 37 years old. Being ineligible for any Disease Modifying Treatment (DMT) within the UK National Health Service, she began to explore holistic approaches to managing her condition. She discovered Overcoming MS in 2008 and has followed the Program ever since. She was previously a Trustee for Overcoming MS. Personal life and career: Helen lives in Conwy, a small, medieval town in North Wales. In 2017, she took medical retirement from the University of Manchester where she was a Professor in the Department of Art History and Cultural Practice. As an Emerita Professor, Helen continues to research and teach doctoral students. She also spends time hand-weaving and learning Welsh, the language of her ancestors.

Amy Cardinal Christianson is a Fire Research Scientist with the Canadian Forest Service. Her research on Indigenous fire stewardship, Indigenous wildland firefighters, and wildfire evacuations is important to any sort of comprehensive view of the shockingly intense wildfires that have burned 4 million hectares so far this year in Canada, and that produced almost 60 million tonnes of CO2 in May. She's also the co-host of the invaluable Good Fire podcast, which I strongly recommend you listen to. She and Matthew Kristoff talk to luminaries on the contemporary reality of fire's extreme intensity and destructiveness, and what can be done to restore a balanced relationship with fire. She's the author of an abundance of work in this field, but I'll just highlight two co-authored books: First Nations Wildfire Evacuations and Blazing the Trail: Celebrating Indigenous Fire Stewardship. Amy is drawing attention to realities and precarities that are too often ignored in the colonial state of Canada. She makes it clear that the impacts of today's fire are “generational” where First Nations and Metis communities are “not [going to be] able to participate in their cultural activities on their land base for a long time.” While that is criminal—the uneven impacts of wildfires that have been supercharged by greenhouse gases and global heating—the irony is that future-oriented forms of Indigenous fire stewardship have historically been outlawed in Canada, the US and Australia, in particular. Amy helps us understand the history and motivations behind that policing of cultural fire. Her research is tough for a number of reasons, and not least because, she says, even though she is a Métis woman from Treaty 8 territory, it's hard to earn the sort of trust necessary to learn fully how Indigenous peoples have preserved their cultural fire practices. In her words: “for Indigenous nations there's a long history of distrust around fire with outside people” and “outside agencies.” It's also becoming difficult to talk about the practice of prescribed burning because of the ways that climate change is altering the atmosphere and making conditions more volatile. Nonetheless, the things she has learned are eye-opening and progressive, reaching down to the roots of the problem of conflagration and problematizing things like land use planning and building design from a deeply decolonial perspective.

Phillip Scott reports on a Sista from South Africa checking WS for saying her cultural practice was witchcraft. --- Send in a voice message: https://podcasters.spotify.com/pod/show/africandiasporanews/message Support this podcast: https://podcasters.spotify.com/pod/show/africandiasporanews/support

In episode 287, Kestrel welcomes Sage Paul, an award-winning artist and designer, to the show. An urban Denesuliné (Den-a-sooth-leh-nay) woman based in Toronto and a member of English River First Nation, Sage is the artistic director and founder of Indigenous Fashion Arts. “There's all this talk about sustainability and you know buy this or buy that, but the truth is, is that these corporations that are preaching this are just making too much. They are making too much, they are mass producing it, and the way that they mass produce it is unsustainable for the Earth. And so, it just doesn't seem like they're painting the full picture for everyone. But then going back to cost — is the fact that people aren't getting paid enough in order to purchase items that are quote unquote sustainable, because the only thing that's accessible are these mass-produced items.” -Sage You may have noticed that the idea of *sustainability* is often aligned with luxury or having extra money to invest in less harmful things or less polluting options – for example, an electric car or organic produce or a more thoughtfully-made garment. These options generally cost more than the conventional option in our society.  While there are a lot of narratives challenging the eliteness of sustainability today, the mainstream conversation has been led by a very white and capitalist-centered idea that promotes buying this, instead of that product.  Like we talked about on last week's show with Kristine of Doen, the sustainability conversation has been very binary in its approach – very good vs bad, and often, oversimplifies what quote unquote sustainability could look like. Through several conversations on the show, we've explored how resourcefulness is a grounding pillar of true sustainability. But it's not just resourcefulness, it's also culture.  As this week's guest shares, thinking sustainably and locally is innately an Indigenous cultural practice – and for many folks, it's not anything *shiny and new* to be learned – it's instead, an integral part of their own history and identity.  Of course, we all have a lot of unlearning and relearning to do – from an individual to a community to a corporate to a governmental level. At the same time – it's important to acknowledge where some of the true knowledge lies in order to collectively move forward in a less harmful way. I love how this week's guest reminds us that it's OK to actually ask the industry to change the way it works.  Quotes & links from the conversation: “Sustainable Clothing Is Fashion-Forward. Just Ask Innovative Indigenous Designer Sage Paul”, article in CBC that Kestrel mentions “I was raised with the values of only taking what you need and sharing those extras that you don't need. And leaving no trace behind wherever you are. Using everything of what you do take, and giving thanks to those items. There's also — in a lot of Indigenous cultures — there's the value and understanding and belief that everything is living, everything has a spirit. So in that way, you would treat things as you would a friend or a family member, even though these are inadimate objects. So, your respect for these inanimate objects become far greater than just a disposable item or a short-term item that you purchase.” -Sage (11:22) “Changemaker Sage Paul On Building A Future For Sustainable Design”, article in FashionMagazine.com that Kestrel mentions “Your Clothes Are The Most Political Choice You Make Every Day”, TedTalk by Sage which was given in 2020 Christian Allaire, writer at Vogue that Sage mentions — listen to the Conscious Chatter episode featuring Christian White Milano, trade show that Indigenous Fashion Arts is taking part in this year Section 35, Indigenous-owned brand that Sage mentions Indigenous Fashion Arts  Follow Sage on Instagram > Follow Indigenous Fashion Arts on Instagram >

From Siri to medical devices, technology and AI are helping us navigate daily life with greater efficiency and ease. But on the flip side, instances of algorithm bias, questions around who is collecting our data and for what ends, and fears about how technology is degrading public discourse are bringing into focus pressing new ethical dilemmas. Transhumanism scholar Elise Bohan (Future Superhuman: Our transhuman lives in a make-or-break century), AI expert Toby Walsh (Machines Behaving Badly: The Morality of AI) and technologist and Palawa-Trawlwoolway woman Angie Abdilla (co-editor of Decolonising the Digital: Technology as Cultural Practice) examine the promises and perils of tech today, in conversation with creative robotics researcher Belinda Dunstan. Sydney Writers' Festival podcasts are available on all major podcast platforms. If you enjoyed this episode, please rate and subscribe to our channel.See omnystudio.com/listener for privacy information.

What can food imaginaries of the past reveal about pathways towards food justice? In this episode, Gastronomica Editorial Collective member Bob Valgenti talks with sociologist Endia Louise Hayes about her newest article, featured in Gastronomica's Summer 2022 issue. Drawing together political histories, lived experience, and collaborative discourses for future possibilities, Endia uncovers the role of African American food imaginaries in creating sustainable foodways. In spotlighting the work of George Washington Carver, Fannie Lou Hamer, and Edna Lewis, Endia discusses land access, community care, pleasure, and freedom, and shares some of the building blocks of an alternative food movement.Heritage Radio Network is a listener supported nonprofit podcast network. Support Gastronomica by becoming a member!Gastronomica is Powered by Simplecast.

On May 23, 2022, Meredith Michael joined JF and Phil for a live recording at Illuminated Brew Works, a craft brewery in Chicago, Illinois.The occasion was the launch of Weird Studies Black IPA, the fruit of a collaboration with IBW brewmaster Brian Buckman and his team of beer alchemists. The game plan was to talk about potions, but the final conversation ranges over a number of topics including singularity and repetition, time and eternity, alchemy and ritual, Okakura Kakuzō's The Book of Tea, cooking and pickling, and the cultural phenomenon Phil calls "weedhead sh*t." Purchase the Weird Studies Black IPA from Beer on the Wall (https://wehavegreatbeer.square.site/product/illuminated-brew-works-weird-studies-4pk-for-shipping-only-/8126?cp=true&sa=false&sbp=false&q=true) or visit the Illuminated Brew Works (https://www.ibw-chicago.com) website. Buy volume 1 (https://pierre-yvesmartel.bandcamp.com/album/weird-studies-music-from-the-podcast-vol-1) and volume 2 (https://pierre-yvesmartel.bandcamp.com/album/weird-studies-music-from-the-podcast-vol-2) of the Weird Studies soundtrack by Pierre-Yves Martel (https://www.pymartel.com) Support us on Patreon (https://www.patreon.com/weirdstudies) Find us on Discord (https://discord.com/invite/Jw22CHfGwp) Get the new T-shirt design from Cotton Bureau (https://cottonbureau.com/products/can-o-content#/13435958/tee-men-standard-tee-vintage-black-tri-blend-s)! Get your Weird Studies merchandise (https://www.redbubble.com/people/Weird-Studies/shop?asc=u) (t-shirts, coffee mugs, etc.) Visit the Weird Studies Bookshop (https://bookshop.org/shop/weirdstudies) SHOW NOTES Okakura Kakuzō, [The Book of Tea](https://en.wikipedia.org/wiki/TheBookofTea)_ Oscar Wilde on absinthe (https://www.goodreads.com/quotes/335553-after-the-first-glass-of-absinthe-you-see-things-as) Mircea Eliade, [The Myth of the Eternal Return: Cosmos and History](https://www.amazon.com/Myth-Eternal-Return-Princeton-Bollingen/dp/0691182973/ref=sr11?crid=2P1E7XDGASW4L&keywords=The+Myth+of+the+Eternal+Return%3A+Cosmos+and+History&qid=1654693787&s=books&sprefix=the+myth+of+the+eternal+return+cosmos+and+history%2Cstripbooks-intl-ship%2C63&sr=1-1) Toni Morrison. Song of Solomon (https://www.amazon.com/Song-Solomon-Toni-Morrison-Books/s?k=Song+of+Solomon+Toni+Morrison&rh=n%3A283155) The Suzuki Method (https://en.wikipedia.org/wiki/Suzuki_method) Robert Fink, Repeating Ourselves: American Minimal Music as Cultural Practice (https://www.ucpress.edu/book/9780520245501/repeating-ourselves) David Cronenberg (dir.), Scanners (https://www.imdb.com/title/tt0081455/) (1981) Lars von Trier (dir.), Dancer in the Dark (https://www.imdb.com/title/tt0168629/) (2000) Alan Watts, Beat Zen, Square Zen and Zen (https://www.amazon.com/Beat-Zen-Square/dp/0872860515) William Shakespeare, Macbeth (https://en.wikipedia.org/wiki/Macbeth) Special Guest: Meredith Michael.

Sam Savage is the Northern Queensland Emergency Services Regional Coordinator for Australian Red Cross where he manages response, recovery and community resilience programs with a focus on psychosocial support.He is also the Chairperson of the First Nations Recovery Group, a national network within the Australian Red Cross team and a member of the organisation's Aboriginal and Torres Strait Islander Leadership Team.Sam joins us to discuss the specific challenges faced by Indigenous communities in a disaster context, what kind of action organisations like Red Cross are taking to address the needs of Aboriginal and Torres Strait Islander communities, and how our emergency management systems can improve to better serve marginalised communities.In this conversation, Sam and Scotia discuss:The purpose of the recently formed Red Cross First Nations Recovery Group and the work it is doing to add a cultural lens to the emergency services sector by deepening knowledge about and tailoring information for Aboriginal and Torres Strait Islander communitiesThe role that culture and connection to Country plays in health and well-being for Aboriginal and Torres Strait Islander people and why it is essential to contextualise disaster recovery around cultural practices and Traditional knowledgeHow we can create better systems and practices in emergency management to support and empower marginalised communities towards ongoing community resilienceSam's role on the National Taskforce for Creative Recovery and how cross-sector collaboration is essential to finding effective ways to support communitiesThe importance of inclusion and the work Sam is doing around advocating for recognition and inclusion, to ensure that First Nations people have a seat at the table in decision-making around disaster preparedness, recovery and responseProduced by: Jill Robson and Scotia MonkivitchAudio Engineer: Glen MorrowLinks:Mayi Kuwayu: the National Study of Aboriginal and Torres Strait Islander Wellbeinghttps://mkstudy.com.auNational Taskforce for Creative Recoveryhttps://creativerecovery.net.au/national-taskforce-for-creative-recovery/Caring for Country: Indigenous Leadership in Disaster Managementhttps://creativerecovery.net.au/creative-responders-podcast/documentary-series/s1-episode-2/

Empowerment is one of the strategic pillars of the Overcoming MS charity, and advocacy is a practical way in which we realize this goal. Living Well with MS is honored to welcome two of Overcoming MS's newest trustees – Prof. Helen Rees Leahy and Alison Marwick – for a special roundtable discussion on how advocacy is put in practice. This episode dives into the mission of advocacy and how we put it in play by developing tools and resources to enable OMSers to have confidence in talking about OMS to family, friends, health care professionals, and others.   Helen's Bio:   Helen was diagnosed with Primary Progressive MS in 1997 when she was 37 years old. Being ineligible for any Disease Modifying Treatment (DMT) within the UK National Health Service, she began to explore holistic approaches to managing her condition. She discovered OMS in 2008 and has followed the program ever since. In 2021, Helen joined the OMS Board of Trustees.   Helen lives in Conwy, a small, medieval town in North Wales. In 2017, she took medical retirement from the University of Manchester where she was a Professor in the Department of Art History and Cultural Practice. As an Emerita Professor, Helen continues to research and teach doctoral students. She also spends time hand-weaving and learning Welsh, the language of her ancestors. Helen has never taken medication for her MS and is committed to living well through active self-care.   Alison's Bio:   Allie is originally from Edinburgh but now lives in Surrey. While living in London in 2004 she had her first MS episode, but it was not until 2011 that she was formally diagnosed. Living in limbo for seven years, she buried her head in the sand and hoped nothing more would happen, but optic neuritis led to a formal diagnosis and the necessity to accept that MS was to be part of her life. Not willing to sit and wait for the next episode, she found Overcoming MS a few months later and has never looked back.   Since finding OMS Allie has supported the organization in many ways, and in 2018 became an ambassador for the OMS Circle in Surrey. Supporting the organization that has given her so much after diagnosis and enables her to live a full life is important to Allie, and why she applied to become an ambassador.   Allie lives with her partner, Neil, and is lucky to be able to work full time as a Salesperson for an IT consultancy. She enjoys spending time in her garden, running (slowly), and is looking forward to returning to Covent Garden Royal Opera House to enjoy the opera in the autumn.   Themes:   What is advocacy? What does it mean for the OMS community? How do we do out it in practice? What is the OMS Advocacy Group? Where can you begin? How do we measure success?   Empowerment begins with OMS listening to and learning from the diverse experiences of our community: we'd love you to help us shape this work. See below for more info on the advocacy section of the OMS website.   Recommended Links:   Check out Overcoming MS's new advocacy page on our website.   Coming up on our next episode:   Only three episodes left in Season 3! Next up: just in time for Giving Tuesday 2021 and starting November 29, meet Nicole Zobrist, the ambassador of the OMS Circle in Portland, Oregon, on Living Well with MS Coffee Break #25, part of our popular ongoing series introducing you to members of OMS's dynamic community from around the globe.   Don't miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. Don't be shy – if you like the program, leave a review on Apple Podcasts or wherever you tune into the show.   S3E44 Transcript Empowering Advocacy   Geoff Allix (1s): Welcome to Living Well with MS, the podcast from Overcoming MS for people with multiple sclerosis interested in making healthy lifestyle choices. I'm your host Geoff Allix. Thank you for joining us for this new episode. I hope it makes you feel more informed and inspired about living a full life with MS. Don't forget to check out our show notes for more information and useful links. You can find these on our website at www.overcomingms.org/podcast. If you enjoy the show, please spread the word about us on your social media channels. That's the kind of viral effect we can all smile about. Finally, don't forget to subscribe to the show on your favorite podcast platform so you never miss an episode.   Geoff Allix (44s): Now without further ado on with the show. Today's podcast is different to every other one that we've had so far in that we have two guests, and we're going to discuss advocacy. And joining me today are Alison Marwick and Helen Rees Leahy. And I'm going to get Alison and Helen to introduce themselves. You may be familiar with Helen; she's already been a podcast guest. I believe it's season two, episode 30 off the top of my head. But there's a podcast about PPMS with Helen, but to start off with, would you like to, well, firstly, welcome and could you introduce yourself, Alison or Allie?   Alison Marwick (1m 31s): Thanks, Geoff. Yeah, delighted to be here on this podcast today and talking a bit about advocacy. So, my name's Alison or Allie Marwick, I have relapsing remitting multiple sclerosis, and although I was formally diagnosed 10 years ago in September 2011, I had my first episode in 2004. So, I've been living with the disease for the past 17 years. I'm fortunate in that I found OMS within about a month of diagnosis, which was great because during that period, I was probably depressed having gone going through that grief cycle of being diagnosed and not really knowing what to do, but I was physically well, I was mentally well, but I had this, what I felt was, you know, a hideous disease and that my life was over.   Alison Marwick (2m 36s): So, finding Overcoming MS within a month was hugely empowering and gave me so much hope. And it enabled me to really take steps in my life that I had been afraid to before. I had been told in 2004 that I probably had MS, or it was highly likely, I think they phrased it, but I pretended that it wasn't there. And I just was living in denial and in fear. And what OMS gave me was that ability to not be fearful anymore, to have hope that I was able to manage my life and that it wasn't over. And I could do all the things that I wanted to do by following the program and have great health outcomes.   Alison Marwick (3m 19s): So that's, you know, that's kind of my story in terms of OMS and how I found it. And I, ever since then, I've been passionate in wanting to support the organization, support other people who are following the program or looking at or interested in following the program. So, I've been an ambassador for Surrey, which is where I lived for the last three years, which has been hugely rewarding. And, you know, we've got an active circle here, which has been great fun and, you know, helping and working with others who are following the program.   Geoff Allix (3m 52s): Excellent. So also joining is Helen Rees Leahy as mentioned. So, Helen, could we have a quick intro from you?   Helen Rees Leahy (3m 59s): Hi, Geoff. Hi, Allie. Hi, everybody. Thank you very much, Geoff, for asking both of us to come on to talk about advocacy today. I'm Helen, Helen Rees Leahy. I was diagnosed with primary progressive MS in 1997. So, I've been living with MS now for nearly 25 years. And as I had a diagnosis of primary progressive from the outset, I have had that course of increasing progression of my illness. I discovered OMS a long time ago, actually. I mean, I think it was something like 2008 when Professor George Jelinek published one of his very early books outlining the backbone of the OMS program.   Helen Rees Leahy (4m 46s): And I seized upon that. I have never been eligible for a disease modifying therapy under the UK NHS system. So, I've always been managing my MS through my own actions and agency, and like Allie discovering the Overcoming MS Program was a tremendous support for me and indeed it supported me throughout my time, my life with MS and continues to do so. So, I think I'm very touched by what Allie says about, you know, overcoming fear and anxiety. And that's something I'd like to come back to. I think in the course of this conversation, the importance of the program, not only in enabling us to lead very healthy lives, as healthy as we possibly can with this condition, but also the emotional, the mental, the psychological support that it gives us in terms of becoming less fearful, becoming less anxious about our conditions.   Helen Rees Leahy (5m 51s): And that's very much, I think, at the core of the advocacy initiative, the ways in which we can really realize the goal of empowerment, empowerment for ourselves and for each other as a community of people living with MS, following the OMS program.   Geoff Allix (6m 13s): Can we start out just as a basic, what is advocacy? To start off with. I think a lot of people won't have heard the term too much. So, could we just define advocacy and the types of advocacy as well? Who wants to take this one out?   Helen Rees Leahy (6m 29s): I'll kickoff, but Allie, I know will come in there as well. I mean, that's right. It's perhaps a rather abstract word. We relate it as I was suggesting a second ago, very much to our strategic goal of empowerment within OMS and really what it is, is making the case for the OMS program. So, if you think about it this way, I think as an organization, we're very good with information to go into the website. There's a massive amount of information about the program, how to implement it. You know, your questions are answered there, but we know that living with MS is challenging and convincing other people of the benefits of following a program like Overcoming MS.   Helen Rees Leahy (7m 16s): It can also be quite challenging. Maybe those, it could be family, friends, it could be your healthcare professional. They don't always understand the program, they don't always see the benefits that we ourselves perceive from it. So, it's making a persuasive argument and it's finding the words and the confidence to make the case for following the program. Sometimes in perhaps what might be quite difficult or challenging situations, you know, where you need to be persuasive. It's beyond information. It's a process of a persuasion. And I say, we can do it for ourselves. We can also do it for each other as well.   Geoff Allix (7m 58s): And Allie, do you have anything to add to that?   Alison Marwick (7m 60s): Yeah, I would agree with that. I think, you know, there are two keywords there that Helen references: empower and confidence. You know, giving people the tools and the techniques and the confidence to be able to talk about their own diagnosis, talk about their own choice to follow the program and the benefits that that's shown. We know from the community engagement survey data that was, you know, we're currently trawling through as an organization, that a lot of people struggle with talking to healthcare providers, talking to their friends and family, but having your friends and family on side is a huge support network.   Alison Marwick (8m 43s): It's really important. And we knew that you, having the confidence and the ability to be able to articulate what it is that you're doing and why, and not have to be defensive and constantly, you know, people going, oh, go on just to have a wee bit cheese or whatever. And so, it's about, we want to enable people to have that confidence, to have that ability, to have those conversations in any environment, whether it's friends, families, healthcare professionals, work, those sorts of areas that we'd recognize, but we maybe need to provide a bit, a few more tools, techniques, and support in order to be able to do that.   Geoff Allix (9m 20s): Absolutely. I think I bet anyone who's got MS and following OMS, I think will be familiar with this. I think, I consider myself very lucky in that my neurologist is very supportive, but I've certainly had many stories of-- probably isn't fair to say, old school neurologists, maybe more traditional, if you like, who really are very much of the opinion, you take the medication and you live life. Literally, I think the phrase did come up like, you know, you've got MS, you don't want to make things any worse and just enjoy life while you can.   Geoff Allix (10m 1s): And it was some really cutting remark like this I've heard, but actually when you look at some of the top neurologists, you know, some really leading neurologists, they are almost entirely of the opinion that lifestyle is a factor and living a healthy life will have an effect on your MS prognosis. So there is definitely, if you've got an up-to-date, if you like, neurologist, they seem to be very pro the OMS approach, but yeah, there are still some more traditionalist and equally person to person as well, because I think all of us will have come across someone who I think you said, why not just have a little bit of cheese, and that is absolutely the case with some people.   Geoff Allix (10m 49s): Again, I feel very fortunate. My family and friends are generally very supportive, but it still happened, you know, a little bit won't hurt sort of argument. So how is advocacy particularly important to the OMS community then? And to the broader MS Community?   Helen Rees Leahy (11m 14s): For me, that's all about individual and collective agency. So, when any of us has a diagnosis of a condition like MS, as Allie was saying, you know, there can be very devastating concerns. And, you know, people of course react in very different ways, but it's, you know, it's a profound change in anybody's life. And in fact, it can be a very traumatic period for people, but what the OMS program does not only, you know, is provide a toolkit to enable us to lead a healthy life.   Helen Rees Leahy (11m 56s): It's also a means of covering our own personal agency of taking control, of feeding that something that we can do and in time, you know, perceiving the tangible benefits of following the program. So, for me, it's that process of taking control, which I think is so incredibly powerful. That is why we believe, of course, the Overcoming MS Program is so valuable in all of our lives and combined elements of it is a kind of more than the sum of the parts. So, I think we know this as individuals, but perhaps as a community, we haven't been quite as clear in articulating that within the MS space more generally.   Helen Rees Leahy (12m 46s): So, I think it's about within the OMS community, becoming more empowered, connecting with each other. And as I say, becoming a stronger voice for the program within the MS space. So, as you say, Geoff, with a healthcare professional, who's a little bit skeptical, with a family member who, you know, is perhaps questioning why somebody with OMS needs to have time and space for meditation or stress reduction, why family food might need to change. So, I think it's about increasing confidence, increasing empowerment, and doing this collectively. We're not expecting, you know, sort of magic wand that any one individual can do this by themselves.   Helen Rees Leahy (13m 30s): So, it's one of the ways in which we want to become more connected as a community as well.   Geoff Allix (13m 40s): And how can you advocate by using your own experiences? What approaches have you had for that? Could ask that to Allie if--.   Alison Marwick (13m 53s): Yeah. Yeah. So, I think a lot of OMSers are naturally advocates because, and you've had many of them here doing podcasts and talking passionately about how following the program has transformed their lives. And as Helen said, not just from a physical perspective, but from a mental perspective, and how they feel about themselves and their own empowerment. So, we can all be advocates just by, you know, talking about our own experiences. And Helen, I'm sure you experienced this as well, but when I meet new people and you're having food in a restaurant or something, and everyone was like, "Oh, what can you eat?"   Alison Marwick (14m 37s): Why do you do that? Like, well, this is why, and this is, I've lived with this disease for, well, had a diagnosis for 10 years. I've followed this program for 10 years and I am in remission and everyone's like, wow. And they get it, you know, some people want to know more. Some people are like, oh, difficult subject, don't want to talk anymore. But I think everybody can be an advocate. We're not, what we're not saying here is everyone has to be. But I think by default, just by having conversations with your family and with your friends and by living your life, people will see that there's something there that you can, that you've got the confidence, you've got the ability and the, you know, you're managing your disease.   Alison Marwick (15m 22s): Helen, I don't know if you want to add to that.   Helen Rees Leahy (15m 26s): Yeah. I think you're absolutely right, Allie and I think the only thing I would add to that is for me, it's, as you say, our own kind of personal stories can be very powerful. And there's an idea which is becoming increasingly accepted and talked about within healthcare systems here in the UK, but also in other parts of the world as well. And this is the idea of experts by experience. It's the idea of the so-called patients being a kind of co-creator of their own kind of treatment plan and parts and acknowledging that alongside the medical model of medical knowledge and research, there are other forms of insight, knowledge, and understanding, which come from the lived experience of an individual and a group of individuals.   Helen Rees Leahy (16m 21s): And it's particularly true with kind of chronic conditions, such as MS. For me, it's more than just our own individual stories. It's actually reflecting on what we've learned, what we learned from those experiences and actually looking for what we have in common, because we know as we've said in this conversation already so far, each of us has a very distinctive experience of MS. And sometimes, you know, your experience is nothing like my experience. Let's put those differences to one side and focus more on what we have in common, what we learn, what we can learn jointly.   Helen Rees Leahy (17m 9s): And I should say, acknowledging both our vulnerability, but also our agency, our vulnerability I think, is what we get from MS. And I think our agency is what we get from OMS, from Overcoming MS.   Geoff Allix (17m 20s): And just as an aside, I mean, I find a lot of people who follow OMS and certainly myself, people always say, you look really healthy, and you look really well. And I've heard that from a lot of OMSers that people are always commenting. How well we look, and I said, I always say, well, yeah, apart from the obvious then yeah, I do actually feel, I think it does actually my sort of ex-- lived experiences that I am definitely healthier apart from the fact of MS. And that my healthcare providers are on board with that, and they said, yeah, I noticed that you're living a really healthy life.   Geoff Allix (18m 0s): You're doing exercise, you're eating a whole food diet, which is good, stress reduction, good. All those things are good things. It's not a, we're not doing some sort of really weird, out there, sort of unusual remedy. These are well founded, healthy things to do.   Helen Rees Leahy (18m 21s): Well. I think that's exactly right, Geoff. And if you had diabetes or a particular heart condition, much of the kind of advice that we follow in OMS would be recommended to you by your healthcare professionals, without any question at all. It's orthodox, it's standard practice. As you said, a few minutes ago, unfortunately, lifestyle management, let alone Overcoming MS isn't yet a kind of standard prescription for people with MS. But you're absolutely right, with-- and you also said something interesting a moment ago about, well, you've got MS so why not enjoy life, which kind of implies that somehow following the OMS program, you know, robs you of enjoyment, well far from it.   Helen Rees Leahy (19m 7s): You know, I think instead of thinking of it as a sort of rule space, sort of diktat, which, you know, is somehow a constraint. In fact, of course, it's a fa-- as you say, it's a foundation to be free and to lead a good life, a healthy life. And of course, to lead the best lives we can with MS.   Geoff Allix (19m 35s): And Allie, have you got a point as well? On that?   Alison Marwick (19m 37s): Yeah. I would add to that, just go back to your comment, Geoff, about people tending to comment that OMSers look well, I think the key thing though is that OMSers know that there are so many hidden aspects of MS. And so, you may look brilliant, you may-- you know, your skin, your hair, everything might be great, but you could be in a lot of pain or, you know, suffering from one of the many things that we know that are hidden to the wider world. So that, I guess, you know, one of the things that we do bring to bear in these kinds of conversations is that yes, we know that the health, the lifestyle and the-- is great.   Alison Marwick (20m 21s): And people comment that physically, we look like what they can see, we look well. But actually, those of us who live with the disease know that there's lots of hidden things there as well. So, we're not, we're not dismissing that, but acknowledging it, and you're working on, you know, helping people in, you know, who are struggling with some of those areas as well. So, there's, it's not, we're not all running marathons and all that kind of stuff. It's about empowering people wherever they are with their disease, and you know, where they are physically and mentally, even if everybody thinks we're all fine.   Geoff Allix (21m 5s): Yeah. We're like swans. We look great on the surface, but an awful lot of work underneath.   Alison Marwick (21m 8s): Absolutely. Absolutely. But, and to Helen's point, you know, I don't, I agree. I don't think that following OMS is a burden. I don't know if somebody told me I could eat meat tomorrow, I'm not sure that I would. I'm, you know, I have-- my life is much more enriched. I've had more confidence, I think, as a person to be able to do things, but I never thought prior to diagnosis that I would do, I guess I've taken life by the horns a little bit more than I would have done before. And certainly, living those years between 2004/5 and 2011. I lived in fear just waiting for the next relapse to happen and made some lifestyle or life decisions that I've completely reversed since following OMS, because I'm not afraid anymore.   Alison Marwick (22m 2s): And I think that's, I think, you know, giving people their hope back is such an important thing with OMS.   Geoff Allix (22m 13s): And so, we talked about advocacy a lot, now on to the OMS advocacy group. So, what is the advocacy group and why is it important to have this group?   Helen Rees Leahy (22m 26s): So, we created the advocacy group at the start of this year, starting 2021. And the importance of it is precisely that it's the goal of empowerment needs to start at home, i.e., within the OMS community. So, with all this discussion about advocacy, we're very clear about this guiding principle, that it must be a kind of community-led initiative. So, from the outset, we wanted to have the voices of OMS as around the table, helping us to start the conversation. And I would certainly want to emphasize that we're still very much at the beginning of this work, which is why it's so great to have this conversation today because we hope it might be a spur for more people to join in the conversation.   Helen Rees Leahy (23m 13s): So, so far, the advocacy group has met, I think, four or five times. It's a small group of OMSers. And we've really been just trying to kind of unpack this, just what we'll be doing today. Really just what this word advocacy means and what might it mean in practice with OMS. So there, the advocacy group is important because it's an initiative which is being led by OMSers. And as I say, we're certainly not complete as a group with small gathering so far. So, if anybody's listening to this podcast today and would like to become more involved, either by suggesting they might want to join the group, we meet every couple of months on Zoom and, or contributing to our advocacy thinking in any other way.   Helen Rees Leahy (24m 1s): If I may just say, Geoff, as soon as this podcast goes live, also going live will be a new advocacy page on the Overcoming MS website. So, if you're on the website and you type in advocacy, or if you're in Google and you type in Overcoming MS advocacy, you'll land on that page. It will give a bit more information about where we are so far, and they'll also be a kind of contact info there. So, you'll be able to get in touch with us if you'd like to be more involved in it, to find out more about what we're doing. And we'd really, really welcome that. As I say, we think sort of empowerment has to start within OMS and we're really determined that we sort of put that principle into practice.   Alison Marwick (24m 48s): Yeah. And just to add to that, Helen, I think is key for anyone that's listening, that we would love people to join the group because we do need more members, but also if you feel that joining the group is too much of a commitment and you don't, you know, you're not comfortable with that, but you want to share something, share an experience. You know, for OMS, the advocacy model we're seeing as being in three parts of self-advocacy being able to talk about it yourself, to your friends and family, and peers. So, talk to other OMSers or OMS or collectively as an organization, you know, to healthcare providers, if you have stories, or if you've got something that you want to share with us, you don't have to join the group.   Alison Marwick (25m 36s): But we're keen to hear, we're, as we mentioned earlier, we're looking at the community engagement survey that so many people responded to over the summer, which is great. And there's a huge amount of data in that, around how people feel empowered or not, some of the challenges that they have. And, you know, so there's some decent information that we can use that, but if, you know, if you haven't shared with us some of your experiences and you feel that, you know, it's something that the organization needs to be aware of because it could help other people, then, you know, the call to action is for those as well as, you know, other individuals, to join the group.   Geoff Allix (26m 20s): And if someone's not comfortable with joining a group, whether they don't have time or they're just, they're not comfortable with sharing, are there resources for people to help them with their advocacy journey?   Helen Rees Leahy (26m 38s): Definitely. Well, as Allie said, definitely there will be. What we did want to do is sort of go off and design those resources by ourselves without talking with our fellow OMSers. So that's exactly what we're planning to do. And as Allie says, people can contribute to that process in all sorts of ways. So, what we're aiming to do, and it will be something which I think you'll be able to see sometime in 2022, we want to take it carefully. We're developing resources, which will specifically be there to support people in as with talking, making the case, perhaps giving them some tools and tips for perhaps quite tricky conversations.   Helen Rees Leahy (27m 25s): When, you know, you're talking to somebody who's a little bit skeptical or resistant to your own kind of commitment to Overcoming MS. So, for example, some of the resources we might have might be frequently asked questions, we might play out some different scenarios, you know, how to cope with challenging or tricky conversations. We're having conversation starters, how do you kind of begin to talk to different people, family, friends, colleagues, healthcare professionals, about this? If you're going to see a healthcare professional, be it your family doctor, or hospital neurologist, or MS Nurse, for example, how might you prepare for that encounter?   Helen Rees Leahy (28m 11s): How might you prepare for that meeting? How might you begin to talk about Overcoming MS with a healthcare professional? And I think that can be quite a challenging meeting in some respects because we know that our expertise is the expertise of lived experience. And as you were saying a few minutes ago, that's neither better nor worse, but it's very different from sort of the medical model for medical expertise. So, we need to be clear about the insight and understanding that we bring to the conversation based on our lived experience and how that can communicate and become a conversation with a healthcare professional.   Helen Rees Leahy (28m 55s): So, we're thinking about these kinds of resources and that's sort of really a first step. So yeah, that's where we're thinking at the moment. But as Allie says, where we're really beginning is also a process of information gathering. So, looking really closely at the community engagement survey data, which is fascinating. And we might just take this moment to thank anybody and everybody who's listening, who participated in the survey because really, you know, your responses are providing really for the first time, I think for Overcoming MS, you know, statistically robust sample of data and findings, which are telling us so much already, and we've really want to root this initiative in that lived experience of the OMS community.   Geoff Allix (29m 55s): And could I ask, what do you think success would look like? How do you measure success, or what do you expect to be a successful outcome of the advocacy group in OMS?   Helen Rees Leahy (30m 14s): Do you want to have a go with that Allie?   Alison Marwick (30m 15s): Yeah. So, success, so we're going to measure success in a number of different ways. And I think we're going to, you know, we need to look to see if there's the global success in OMS being everywhere, but that's going to be quite a way off. So, let's look at it. The community engagement survey is going to be done on an annual basis. And so, we will be using the empowerment questions that are part of that to see whether or not we've shifted the dial on how empowered people feel and having control, how confident they are about talking to their healthcare providers, how supportive family and friends are. So, we're going to use that as a mechanism to be able to measure, but that's going to be another year before we do that.   Alison Marwick (30m 59s): So obviously we're not going to just sit back and wait to see what the results are, I think other success factors are going to be about how many people engage with this process that want to get involved. And we're going to look at success with, you know, some of the material that's going to be created in terms of, as Helen said, talking to healthcare providers, you're preparing for those kinds of conversations. How many of those items get downloaded from the website? What the kind of conversations are across the forum and the website, and looking at it, generally you know, how many more people are finding it, you know, finding the confidence and the empowerment.   Alison Marwick (31m 48s): So, we've not put together specific, eh, KPIs, success factors at the moment, not wanting to be too corporate about it, but, you know, because we are right at the very beginning. But we are, you know, we're looking at well, what do we want, what is success going to be in the next six, 12 months before we move into, you know, really accelerating us further down the line?   Geoff Allix (32m 12s): Helen, do you have anything to add to that?   Helen Rees Leahy (32m 16s): No, I think Allie outlined that very well. Again, if you're listening to this and you think, okay, I know something that will be a good measure of success. Let us know. You know, as I say, we really want this to be very much informed by anybody and everybody within the OMS community. So as Allie says, I'm reluctant to pin things down too hard and fast too quickly.   Geoff Allix (32m 42s): So, with that, I'd like to thank you very much for joining us on the podcast and encourage everyone to have a look at the OMS advocacy page and wish you every success for the OMS advocacy group. So, thank you very much for joining us, Helen and Allie.   Helen Rees Leahy (33m 1s): Thanks a lot, Geoff.   Alison Marwick (33m 3s): Thanks, Geoff.   Geoff Allix (33m 4s): And thank you for giving us this chance to wave the advocacy flag. Thank you.   Alison Marwick (33m 13s): Yes, thanks very much.   Geoff Allix (33m 14s): Thank you for listening to this episode of Living Well with MS. Please check out this episode's show notes at www.overcomingms.org/podcast. You'll find all sorts of useful links and bonus information there. Do you have questions about this episode or ideas about future ones? Email us at podcast@overcomingms.org and we'd love to hear from you. You can also subscribe to the show on your favorite podcast platform, so you never miss an episode. Living Well with MS is kindly supported by a grant from the Happy Charitable Trust. If you'd like to support the Overcoming MS Charity and help keep our podcast advertising free, you can donate online at www.overcomingms.org/donate.   Geoff Allix (34m 1s): Thank you for your support. Living Well with MS is produced by Overcoming MS, the world's leading multiple sclerosis healthy lifestyle charity. We are here to help inform, support, and empower everyone affected by MS. To find out more and subscribe to our email newsletter, please visit our website at www.overcomingms.org. Thanks again for tuning in and see you next time.

“Normally we'd be getting ready for bringing young people to the Central Coast for a week to give them a NAISDA experience. We can't do that. So, we've taken the auditions online to get as many young people across the country connect to us through that platform.” - Jo Clancy, NAISDA Head of Cultural Practice.

MANA BOMB: Appropriation of cultural practice used to enhance today's definitions, shifted or evolved? FOCUS: Ho'oponopono gone viral let's talk about it, you know you want to. ENGAGEMENT: Do we appropriate other cultures? Do we appropriate our own? - - The ladies share their experiences as appropriation in their lives as cultural practices. They define appropriation and share ways to move about and pass the lines of appropriations. - - Don't forget to visit their YOUTUBE Channel @manabombspodcast to LIKE and SUBSCRIBE. Be sure to get your DAILY MANA BOMBS on Instagram @pomahinadesigns and @manabombsllc for events and updates, as well as @kulanz.manabombz. Or subscribe to our YOUTUBE channel MANA BOMB PODCAST - - We are FREE and do this with aloha, if you are enjoying our MANA Bombs please feel free to help keep us going and alive by subscribing to our Patreon https://www.patreon.com/manabombs with as little as $5. Get the perks too!! - - As with all of our podcasts, please be aware that we share our stories and experiences, being vulnerable and free to speak we share matters of the heart, body, mind, and soul that may open up triggers. It is never our intention to open wounds, but we hope that our experiences help you heal. --- Send in a voice message: https://anchor.fm/manabombs/message Support this podcast: https://anchor.fm/manabombs/support

There is power in the things America has taught us to be shamed of. --- Send in a voice message: https://anchor.fm/crystal-ermon/message

Bio:   Helen was diagnosed with Primary Progressive MS in 1997 when she was 37 years old. Being ineligible for any Disease Modifying Treatment (DMT) within the UK National Health Service, she began to explore holistic approaches to managing her condition. She discovered OMS in 2008 and has followed the programme ever since.   Helen lives in Conwy, a small, medieval town in North Wales. In 2017, she took medical retirement from the University of Manchester where she was a Professor in the Department of Art History and Cultural Practice. As an Emerita Professor, Helen continues to research and teach doctoral students. She also spends time hand-weaving and learning Welsh, the language of her ancestors. Helen has never taken medication for her MS and is committed to living well through active self-care.   Questions:   Can you please tell us a bit about yourself, where you’re from, what you do, family, etc. Let’s understand a little bit about your MS journey – when were you diagnosed and how did you initially handle it? When did you discover OMS and why did you decide to follow the program? You’re a member of the OMS community with PPMS – can you shed some light on what PPMS is and what life is like with that specific type of MS? How does the OMS program fit into the realities of someone with PPMS? What are the biggest obstacles to someone with PPMS adopting the program? How do you personally suggest dealing with these obstacles? In your own experience with both PPMS and OMS, how do you measure progress? If you could articulate one specific outcome that five ago, looking forward, you can say you really wanted to achieve and which you’ve now really nailed through adopting OMS, what would that be and why? As someone with PPMS, what can you share with others that have PPMS that motivates or inspires you?   Links:   Follow Helen on Instagram Learn more about Feldenkrais in the UK and globally   Coming up next:   On our final Coffee Break installment for 2020, travel to the UK to meet Alexandra Storey and hear how she’s helping do her part to ensure OMS has a successful outing on Giving Tuesday, all on Living Well with MS Coffee Break #12, which premieres on Monday, November 30, just one day before Giving Tuesday. And to our friends and community members in North America, Happy Thanksgiving!   Don’t miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. Don’t be shy – if you like the program, leave a review on Apple Podcasts or wherever you tune into the show.

Johannes and me meet for the first time in person to unpack his Blackademic work and our collaboration on Everyday Black Matter film. If you haven't watched the film yet; DO IT. This is one of many "talkback" kikis we'll host on this platform. Johannes is the lead musician on the film. After (virtually) working together to create a type of Black Matter we both vibe wit, I had to bring him on the podcast! *Special guest Aurora Higgs drops by to kiki about her scene in the film using Johannes's beat. Tune into *part 1 AND part 2*... It was too much tea for one ep. PSA: Ally and Comrades. Drop $AuroraHiggs and/or $JohannesBarfield some love for their work on Everyday Black Matter film [$$], cause we been out here and we need reparations now. Episode Reads Tina M. Campt, Listening to Images, Chaz Antoine and Crew, Everyday Black Matter (Film) Imagination of the Marginalized by bell hooks bell hooks, Black Vernacular: Architecture as Cultural Practice (article) Rebecca Walker and Crew, "The Geek" by Mat Johnson, found in Black Cool: One Thousand Streams of Blackness (anthology) *All beats featured in this episode by Johannes*

Lyndsey Craig delves into the anthropology of pubic hair grooming, discussing sexual signaling, the symbolism of pubic hair with respect to hygiene, marital status, or fertility, how body hair is tied to beauty aesthetics, and how the removal of hair is both an intimate practice and a form of identity communication.

"My decision to take on that labor had everything to do with the fact that I didn't have someone like me available. I didn't have anyone to help me demystify the process of the academy."

Heywire winner Karlira Kelly, from Borroloola, NT shares about what a long walk through her ancestors' country taught her about culture.

Heywire winner Max Alpin, from Kuranda, Queensland tells about his love of spear fishing with his family in the Barron River.

On Dancing On Air Annalouise Paul is in converstion with Cali Prince talks with her about work as theatre maker, producer, council worker and the political landscape of working with community, council and art. Lots for your brain to chew on. Photo credit Wendy McDougall.  

Episode 036 of F-Stop Collaborate and Listen with Germany-based landscape photographer, Alexander Otto. Alexander Otto has some incredible photography that is well worth checking out when you have a chance. He was really fun to talk to all the way across the Atlantic Ocean and his English is outstanding. I think you're all going to really love this week's episode. Alexander and I covered some great topics this week, including: How Alex got into Landscape Photography Death Metal Music! Landscape photography as a cultural practice Instagram and the rise in popularity of certain Europe locations Please consider supporting the podcast on Patreon! Let’s keep the conversations going! Patrons can ask future guests questions, get exclusive access to bonus content, get awesome swag, and more! I've added bonus interview content for every guest since episode 27! Check it out. To learn more about Alex: His Website Facebook Instagram Here are the artists that Alex would like to hear on the podcast: Alex Nail Cody Duncan Jose Ramos Some examples of Alex's amazing photography can be seen below.  I love hearing from the podcast listeners! Reach out to me via email, Instagram, Facebook, or Twitter if you'd like to be on the podcast or if you have an idea of a topic we can talk about.

Philip Steinberg (http://philsteinberg.wordpress.com) is Professor of Political Geography at Durham University and Associate Editor of Political Geography. At Durham, he is Director of IBRU: Durham University’s Centre for Borders Research and he also coordinates the ICE LAW Project (the Project on Indeterminate and Changing Environments: the Anthropocene, Law, and the World). Phil’s research focuses on the projection of social power onto spaces whose geophysical and geographic characteristics make them resistant to state territorialisation, spaces that include the world-ocean, the universe of electronic communication, and the Arctic. His publications include The Social Construction of the Ocean (Cambridge, 2001), Managing the Infosphere: Governance, Technology, and Cultural Practice in Motion (Temple, 2008), What Is a City? Rethinking the Urban after Hurricane Katrina (Georgia, 2008), Contesting the Arctic: Politics and Imaginaries in the Circumpolar North (I.B. Tauris, 2015), as well as recent articles in journals including Annals of the Association of American Geographers, Society & Space, Ocean Development & International Law, Antipode, Polar Geography, and Atlantic Studies.

Presentation by Deborah Rubin, co-Director, Cultural Practice, LLC, at the IFPRI Policy Seminar "Beyond Gender Myths," held November 22, 2013 in Washington, D.C.

How do you design a mobile money service for people who’ve never had a bank account? Or an address book for people who’ve never had an address? Rachel will share her thoughts on the challenges and opportunities designing for global markets will present to the user experience industry in the years to come.