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In this special episode, recorded on June 24 and released on June 25, we bring you a timely dispatch from Washington, D.C., where the Hospice and Palliative Nurses Association (HPNA) leadership and staff engaged in direct advocacy on Capitol Hill. Join Gayle Gerdes, Vice President of Health Policy Source and consultant to HPNA, and HPNA Manager of Advocacy and Health Policy Sarah Potter as they reflect on their experiences meeting with congressional staffers about HPNA's public policy priorities and amplifying the voices of hospice and palliative care nurses. This episode offers an insider look at the policy priorities that matter in 2025, from protecting federal programs that support nursing research, education, and workforce development to enactment of policies that improve access to quality hospice and palliative care—and how HPNA is uniquely positioned as an interprofessional voice in the conversation. Key highlights include: The purpose and power of advocacy—why storytelling matters Updates on the current climate in Washington, proposed cuts to healthcare programs that impact the interprofessional team and patient access to care, and HPNA's efforts to advance legislation supporting hospice and palliative care nursing HPNA's collaborations with national coalition partners and legislative champions in the House and Senate Reflections on the importance of nurse-led advocacy and new opportunities for HPNA members to share their stories and effect policy change at the state and national levels Whether you're new to policy or a seasoned advocate, this episode will leave you inspired to raise your voice—and equipped to do so effectively. Gayle Gerdes Gayle Gerdes is Vice President at Health Policy Source, a government relations firm in Washington, D.C. that provides strategic consulting and lobbying services to a broad group of clients in the health care space. Her health care background is an extensive mix of government and private sector experience. She spent several years on Capitol Hill where she worked in both the House and the Senate focusing her time on health care legislation. Later she moved to The Concord Coalition where she worked with the media, Members of Congress, and related organizations to educate the public on the federal budget and deficit. In particular, she delved into the relationship of Medicare and Social Security with the federal budget. In addition, Gayle has experience serving on the board of the Los Alamos Medical Center, and she has recently consulted for The Brooks Group and The Concord Coalition. Gayle graduated from the University of Arkansas with a B.A. in English and Communications. Sarah PotterSarah Potter is the Manager of Advocacy and Health Policy at the Hospice and Palliative Nurses Association (HPNA). Sarah has more than 20 years of experience in government relations, health policy, and communications, with a focus on healthcare workforce issues, Medicare, Medicaid, children's health, quality improvement, and the Affordable Care Act. She has developed and implemented state and federal advocacy campaigns and advocacy education programs for several national organizations, including the Pew Charitable Trusts, Independent Sector, the Premier Healthcare Alliance, and the Brookings Institution. Sarah began her career on Capitol Hill as a legislative and communications staffer for Rep. Karen McCarthy of Missouri and Senator Joe Lieberman of Connecticut and holds dual degrees in Journalism and Political Science from the University of Missouri Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.
In this episode of the Kidney Commute: Pitstop* series, host, Raphy Rosen is joined by Christine Corbett and Alvin Moss to discuss active medical care without dialysis. Host: Raphy Rosen, MD, FNKF Guests: Christine Corbett, DNP, APRN, FNP-BC, CNN-NP, ACHPN, FNKF & Alvin Moss, MD, FACP, FAAHPM Please visit https://www.kidney.org/podcasts/kidney-commute to view additional resources. *The Kidney Commute: Pitstop series was previously known as the NKF Life as a Nephrology Professional podcast.
Send us a textMarianne and Jeanna Ford discuss the Hulu Series "Dying for Sex," a true story about a 42 year old woman with recurrent breast cancer. https://bit.ly/3FQcND3Several patients told Dr. Ford she had to watch this. One patient told Jeanna she felt “seen and heard” as this was the first thing to represent what she was going through as a metastatic cancer patient.Why did they find it so powerful? Listen to our interview with Jeanna as she and Marianne discuss the many facets of the terminal metastatic cancer journey that the show explores. In this Episode:03:06 - Road Trip: Maine, Moxy Soda, and Burnt Trailer05:54 - Recipe of the Week: Whoopie Pie06:53 - Discussion of the Hulu Series "Dying for Sex" With Dr. Jeanna Ford45:14 - OutroWhat is “Dying for Sex” About?The series is fairly closely follows the true story of Molly Kochan and her best friend Nikki Boyer. When Molly was diagnosed as terminal with Stage IV Metastatic Breast Cancer at age 42, she realizes for the first time that “life is short” is more than some stupid cliché. With this new ticking-clock hanging over her head Molly make a decision . . . to start living HER LIFE. She leaves her husband and goes on a quest, searching for life's answers via a sexual journey of exploration. She juggles dozens of online suitors and brings kinks and fetishes into the real world, all while dealing with the ups and downs of her cancer treatment.***Spoiler Alert - We Do Discuss The Whole Show***What Does the Show Teach Us?Jeanna and Marianne talk about a lot of points that the episodes cover, from the need for intimacy, end of life wishes, the impact of abuse, communication needs with healthcare team members, and perspectives of not just the person with cancer, but family members, friends, and caregivers.Cancer healthcare teams, mothers, caregivers and terminal cancer patients may all find something they can learn from this series.#cancer #dying #metastaticcancer #terminaldisease #terminalcancer #lastwishes #bucketlist #sex #sexuality #palliativecare #deathdoula #cancercaregiver #everyonedies #everydayisagift Halfway To Dead, A Midlife Spiritual JourneyMidlife is freaking hard. Let's flip the script. Listen on: Apple Podcasts SpotifySupport the showGet show notes and resources at our website: every1dies.org. Facebook | Instagram | YouTube | mail@every1dies.org
In this episode, we hear from Deb Russell, RN, MSN, FNP-BC, APRN-CNP, ACHPN® with over 20 years in the field, currently leading care in an outpatient, harm-reduction-based palliative clinic. She provides palliative support to patients undergoing active cancer treatment who are also living with substance use disorders—a population with complex and often unmet needs. Deb shares firsthand insight into: Navigating symptom management during cancer treatment in patients with active addiction Building trust through a harm-reduction approach Collaborating closely with an interdisciplinary team including a physician and pharmacist Deb shares the unique challenges and clinical considerations—of meeting this patient population where they are—safely managing pain, communication, and care coordination. This conversation offers practical insights and compassionate strategies for anyone caring for patients with co-occurring serious illness and SUD. Deb Russell, RN, MSN, FNP-BC, APRN-CNP, ACHPN® Deb Russell, RN, MSN, FNP-BC, APRN-CNP, ACHPN® is a dedicated Nurse Practitioner specializing in Palliative Care, with a focus on cancer and addiction. With a deep commitment to patient-centered care, Deb provides compassionate support to patients battling both cancer and substance use disorders. With over 18 years of experience mostly inpatient, now in the ambulatory setting, Deb works closely with the interdisciplinary team to develop care plans that improve patient outcomes. Deb is passionate about bridging the gap between oncology and addiction, advocating for treatment approaches that empower patients throughout their journey. Deb has co-authored a paper “Creating a Palliative Care Clinic for Patients with Cancer and Substance Use Disorder” and presented a poster at the Oncology Nursing Congress on” Nurse Practitioner Integration in a Multidisciplinary Team Caring for Patients with Cancer and Addiction”. Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.
Learn the terms healthcare teams use after cancer treatment is complete, and why they hesitate to use the word "cured." https://bit.ly/3FfnfUxAdvances in cancer diagnosis, screening, and treatment have greatly improved the 5-year survival rates of most people with cancer over the last 30 years. Long-term survivors of cancer are more and more common, and research is increasingly directed at helping people live well after a diagnosis of cancer. But even so, many oncologists still hesitate to use the word “cure” with their patients. We talk with Dr. Jeanne Ford about the difference between the terms No Evidence of Disease (NED), remission, cure, and cancer free.In this Episode: 03:11 | Travel-Vermont and Vermont Chicken Pot Pie04:25 | The Trouble with Using the Phrase "Cancer Free"10:20 | Why We Don't Say Cancer is Cured12:00 | How Dr Ford Explains NED to Her Patients19:17 | What Does "Cure" Really Mean?29:38 | How Do Native Communities Treat the Concept of a Cancer Cure32:51 | The Role of Hope and How to Deliver Honest Information37:28 | Addressing Fear of Recurrence and Uncertainty about Future44:13 | Cancer Survivorship and Surveillance46:03 | Outro#survivor #cancersurvivor #cancerfree #remisssion #NED #cancercured #treatmentfinished #survivorship #oncologynurse #caregiver #palliativecare #everyonedies #everydayisagift #cancerjourneySupport the showGet show notes and resources at our website: every1dies.org. Facebook | Instagram | YouTube | mail@every1dies.org
In this deeply personal and resonant episode, longtime hospice nurse and podcast host of The Heart of Hospice, Helen Bauer, BSN RN CHPN®, shares an intimate look at the soul of hospice nursing — the part that's rarely documented but always deeply felt. With more than seven years behind the mic and a career alongside patients and families at the bedside, Helen reflects on the intimacy and intensity of hospice care, and the challenges of translating those sacred moments into clinical notes and checkboxes. Together, we explore the personhood-centered mindset that defines exceptional hospice nursing: arriving as a blank slate, open and eager to learn who the patient is, then crafting care that honors the individual's story, values, and needs. Helen speaks candidly about the emotional toll of the work, the cumulative grief nurses carry, and the resilience it takes to keep showing up — not just for patients, but for ourselves. Listeners will hear reflections on: The artistry and difficulty of painting a picture through documentation How hospice nurses excel at education and advocacy, even outside traditional care settings What we're doing well as a community — and where we can grow The value of Hospice Navigation Services and empowering families with information The quiet power of showing up, day after day, with care and presence This episode is a tribute to hospice nurses everywhere — a reminder that your work matters, your presence is powerful, and you are just as important as the care you provide. Whether you're a hospice nurse, a health care professional, or a family member navigating end-of-life care, this episode will speak to the heart of what it means to accompany someone at life's end — with compassion, courage, and creativity. Helen Bauer, BSN RN CHPN® Helen Bauer is a highly experienced hospice nurse with more than 15 years dedicated to end-of-life care. Her expertise spans across bedside care, caregiver support, nursing leadership, and hospice consulting. Since 2016, she has been the voice behind The Heart of Hospice podcast, where she shares her deep knowledge and compassionate approach to end-of-life care. As the founder of Hospice Navigation Services, Helen provides unbiased, expert guidance and support for individuals and families navigating the complexities of hospice and serious illness. Her work as an End of Life Educator and Advocate focuses on empowering caregivers and hospice workers, ensuring that those facing serious illness experience the best possible care at the end of life. Known for her compassion, empathy, and respect, she remains a trusted resource in the field of hospice care. Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.
In this episode, we explore the profound impact of Kelli Anspach MSN, CV-BC, NPD-BC, CHPN®'s thriving and sustainable training program, which has successfully trained more than 1,000 hospital nurses over the past 10 years through the End-of-Life Nursing Education Consortium (ELNEC) program, founded by Betty Ferrell PhD, MSN, CHPN®. By providing nurses with the essential skills and knowledge to lead compassionate palliative care conversations, this initiative empowers staff to facilitate critical "goals of care" discussions with patients and families. In this episode, Kelli and Brett discuss how this training not only enhances collaboration with palliative care teams but also drives improved patient satisfaction and better overall care outcomes. Additionally, the conversation takes a closer look at the return on investment (ROI) for hospitals and demonstrates how training nurses across all service lines is a cost-effective strategy to elevate patient care, boost nurse confidence, and foster a more supportive health care environment. With the right education, staff can empower frontline nurses across various serious illness service lines to make a lasting, positive impact on patient care. HPNA is proud to partner with Betty Ferrell and City of Hope to offer virtual ELNEC Train-the-Trainer courses twice per year. Visit the HPNA website for more information on upcoming courses and to learn how you can make a difference at the system level in your own health care organization. Kelli Maher Anspach, MSN, CV-BC, NPD-BC, CHPN® Kelli has her BSN and MSN from Drexel University. She holds multiple certifications: Cardiac Vascular Certified Nurse, Nursing Professional Development Specialist, Certified Hospice and Palliative Nurse. Kelli has her ONS chemotherapy administration certification, is a certified Aromatherapy provider, and a Level 2 Reiki practitioner. Kelli has planned, presented, hosted, and facilitated many conferences from Women and Heart Disease to Nursing Research to Integrative Therapies but the most rewarding was her work with End of Life Nursing Education Consortium (ELNEC). Kelli implemented ELNEC across a five-hospital health system from 2013-2018. This included securing grant money for the project and educating more than 900 staff in end-of-life patient care. Kelli was the Winner of International ELNEC Award for excellence in education, has as presented at local and national conferences, and is published in her field. Kelli continues to be a strong advocate for palliative care and started a palliative care champion model for nurses in her health system to support identified knowledge and practice gaps. Kelli is a Nurse Residency Facilitator where she helps to support and mentor new graduate nurses in their transition to their first year as a professional nurse and lectures for the program on End-of-Life Nursing and Self Care. She teaches classes in oncology, telemetry nursing, and preceptor development for her health system. Kelli is a mother of three, loves to dance and hike, and enjoys her day-to-day role as a Clinical Nurse Educator at Lankenau Medical Center, part of Main Line Health System. Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.
Join us for an insightful episode featuring seasoned Pediatric Nurse Practitioner Meggan Mikal-DeMont DNP, APRN-FPA, PCNS-BC, CPNP-PC, CHPPN ®, FPCN® with more than10 years of experience in palliative care and pain management. In this whole-hearted interview, she reflects on her husband's nine-month experience with Stage IV colorectal cancer and offers an insider's perspective as both a palliative care clinician and caregiver- how as a couple they navigated the miracle they were hoping for within the system, how these experiences have transformed Meggan's clinical practice, and how life has unfolded since then. Listen for what the health care teams did well, areas where they could improve, and how administrators can champion hospice and palliative care services to make end of life easier for patients and their families. Meggan Mikal DNP, APRN-FPA, PCNS-BC, CPNP-PC, CHPPN®, FPCN®Meggan Mikal-DeMont is the nurse practitioner of Pediatric Advance Care Team - Palliative & Pain at Advocate Children's Hospitals in Oak Lawn, IL. Pursuing her interest in working with families that have children living with complex and series illnesses, Meggan has completed a fellowship in pediatric neurodevelopmental disabilities through the Illinois Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program. She also has completed a fellowship in pediatric palliative and hospice nursing through University of Illinois in Chicago and through the Coleman Foundation. This led her to also become a board-certified pediatric hospice and palliative nurse in 2009. Meggan, along with an interdisciplinary committee, started the Pediatric Palliative and Supportive Care program at Advocate Children's Hospital - Oak Lawn in October of 2012. Her background as a pediatric intensive care nurse is where her love and passion for working with children with critical and chronic illness grew. She is an End-of-Life Nursing Education Consortium (ELNEC) trainer and received that training at St. Jude's Hospital in Memphis, TN. Meggan is an active member of the Hospice and Palliative Nurses Association (HPNA) where she serves on the Advocacy and Legislative Committee. She participated as both an item writer and chair for the pediatric hospice and palliative nurse exam from 2010-2016. Meggan was also recently inducted as a Fellow of Palliative and Hospice Nursing (FPCN®) and is so thrilled to be recognized for her true passion and purpose to this field. Becoming a widow and a solo parent in 2017 after her husband Andrew died from advanced colorectal cancer has only grown her passion for delivering and advocating for nothing short of the best delivery of palliative and hospice care. Meggan is blessed to be given a new chapter and now lives with her husband Nate, eight year old son Andy, bonus seven year old daughter Elizabeth, and two and a half year old rescue dog Zoey, in Plainfield. Within palliative care, Meggan has a strong interest in the areas of patient-provider boundaries, patient and family advocacy, and the delivery of diverse, equitable, and inclusive care. Meggan believes that caring for children with serious illnesses truly starts at the grassroots of relationships. She believes that the family is the center of the care being provided and it is a relationship built on partnership. Helping children live life to their fullest ability without burdensome symptoms is something that she strives to achieve each day. Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.
Send us a textIs the reason I got cancer because of fate, punishment...or is it just part of the human experience? Show NotesHow people receive a cancer diagnosis is variable. Their reactions can range from anxiety, fear, and depression to feelings of guilt. They may feel cancer is a punishment for past actions or failure to practice a healthy lifestyle. This week we dive into these emotional reactions, including the perspective that Dr. Jeanna Ford brings from her work with indigenous communities.In this Episode:01:50 - Celebration of our 250th Podcast!02:35 - Recipe of the Week: Cincinnati Chili03:57 - How Did Valentine's Day Start?06:41 - Why Do I Have Cancer? Views07:07 - Is Cancer Just Kismet - or Fate?08:18 - Some View Cancer as a Gift09:23 - Cancer Viewed as Punishment or Bad Karma11:58 - How Shame and Stigma Affect Us15:13 - Dr. Jeanna Ford: Self Blame for Cancer Common in Indigenous Communities and for Veterans29:44 - OutroSupport the showGet show notes and resources at our website: every1dies.org. Facebook | Instagram | YouTube | mail@every1dies.org
Episode Resources:Click here to download the app ‘Palliative Wound Pro' for Apple devicesClick here to download the app ‘Palliative Wound Pro' for Android devices About the Guest:Anne Walsh, ANP-BC, ACHPN, CWOCN, has been a registered nurse since 1995, beginning her career in home health care. She became certified in wound, ostomy, and continence nursing in 2001 and earned her master's degree and nurse practitioner certification in 2003. In 2008, Anne achieved advanced certification in hospice and palliative nursing and has since dedicated her career to working as a WOC nurse practitioner in hospice and palliative care.Recognizing the shortage of wound and palliative care-certified clinicians, Anne developed the “Wound Care Pro” app, a valuable resource for clinicians treating patients with wounds, whether the goal is healing or palliation. Her expertise and innovative approach continue to make a significant impact on patient care and clinician education.
In this episode, we explore two innovative projects—Project UPHOLDS (Utilizing Palliative care for Heart failure Optimized using Lay navigators to Decrease Suffering) and Project ADAPT HF (ADdressing All Pain Through navigator-led palliative care optimized for Heart Failure)—which focus on utilizing community-based lay navigators to optimize palliative care for heart failure, especially among older Black adults. We delve into the importance of shared decision-making and how co-designed interventions are shaping pain management trials, with a special emphasis on inclusivity and addressing under-representation in research. Rachel shares her personal journey and career trajectory, highlighting the privilege of being able to advocate for these communities and the impact of culturally responsive care. Rachel Duncan Wells, PhD, MSN, RN, CNL Dr. Rachel Wells is an Assistant Professor and Core Mixed Methods Faculty in the School of Nursing at the University of Alabama at Birmingham. As a nurse and Clinical Nurse Leader with more than 10 years of clinical experience in cardiac critical care, palliative medicine, and rural health, her research bridges the fields of chronic illness care and early palliative care and is focused on refining palliative care access for under resourced older adults living with serious illness. Specifically, Dr. Wells has focused on the development and testing of highly efficient and effective models of early palliative care for those living with advanced heart failure. Her emerging program of research focuses on the examination of active palliative care intervention elements and dosing of palliative care to develop optimized interventions that uniquely address palliative care needs, a novel approach to addressing health disparities in under resourced palliative care populations. She has been involved with a number of federally-, foundationally-, and intramurally funded grants as a PI and Co-I that have involved intervention development and tailoring and clinical trials testing and implementation of models of early palliative care for those living with serious illness and their family caregivers. Dr. Wells is regularly engaged in the American Academy of Hospice and Palliative Medicine, American Heart Association, American College of Cardiology, and the Hospice and Palliative Nurses Association, where she has championed efforts to educate clinicians and others to identify, monitor, and intervene early for cardiovascular challenges in under resourced populations. Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.
In this episode, three HPNA Diversity, Equity, Inclusion, & Belonging (DEIB) Committee members reflect on their lived experience- how positionality impacts the way they show up to their work as hospice and palliative care clinicians and researchers and how they've shifted from cultural competency toward cultural responsiveness. Together, these experts discuss how our knowledge and actions must evolve in the face of new information, and how we can foster a healthcare environment that not only acknowledges but celebrates individual identity and culture. Whether you're a clinician, researcher, or anyone passionate about making healthcare more equitable, this conversation provides valuable insight into how we can all "do better" by truly seeing each person as they are. Nancy Dias, PhD, RN, MSN, FPCN® Nancy Dias is an Associate Professor in the Nurse Science Department at the College of Nursing. Her work experience in nursing includes both experiences in the United States and internationally (India and Oman) as a clinician, educator, administrator, and a researcher. She completed her PhD at Duke University School of Nursing and a 1-year T32 post-doctoral fellowship from Indiana University School of Nursing. As a researcher, she has a niche for a very significant and innovative aspect of pediatric palliative care services that includes caregiver health outcomes, their bereavement processes, social and structural determinants of health, and innovative technology. Her academic initiatives have focused on transforming educational curriculum to integrate a nursing curriculum with a goal “charting a path to achieve health equity”. Her entrepreneurial skills are exemplified through her role as a co-founder of the Indo-American Evidence based practice Academy and development of an innovative app for bereaved families. She has received several research grants and among many awards, she is the recipient of the Research Nurse of the Year Award 2020, from North Carolina Nurses Association. She has also been recognized with several other awards including, East Carolina University College of Nursing Outstanding Faculty award (2022), Outstanding Mentor award from Sigma Theta Tau's Beta Nu chapter (2024). She was inducted as the Fellow in Palliative Care Nursing in 2024. She has international collaborations with nurses in India and Egypt and mentors these nurse scientists with whom she shares common research and scholarship interest. She has several publications and presentations done locally, nationally, and internationally. Adrienne Jones-Adamczyk, MBE, RN, ACNP-BC ACHPN®, HEC-C Adrienne Jones-Adamczyk MSN, MBE, RN, ACNP-BC, ACHPN®, HEC-C is a Senior Clinical Ethics Specialty Program Director for Banner Health. She has more than 14 years of experience as a board-certified Acute Care Nurse Practitioner and is an Advanced Certified Hospice and Palliative Care Nurse. She has spent her career in Neuroscience, Palliative Medicine, Home Hospice, and Hospice GIP settings. The clinical conundrums and ethical dilemmas of the COVID-19 pandemic inspired her to continue her education in bioethics, and she obtained a Master of Bioethics degree in May 2023 from Harvard Medical School. She continues her work in equity and human flourishing as an active member of the HPNA Diversity, Equity, Inclusion, and Belonging Committee. Katherine Doyon, PhD, MED, RN, CHPN® Kate Doyon is an assistant professor at Boise State University, School of Nursing. She serves on HPNA's Diversity, Equity, Inclusion, and Belonging Committee and Research Advisory Committee and is a former co-chair of the Emerging Scholars Special Interest Group. She is a certified hospice and palliative care nurse and volunteers on the CHPN® Credentialing Committee. She is a member of the most recent Cambia Sojourns Leadership scholars' program. Kate is passionate about mentoring the next generation of hospice and palliative care nurse scientists and mentors several nurse scholars. She is the recipient of the HPNF Research Scholar Award, the first author of the section on health equity for the HPNA Research Agenda and a reviewer for palliative care journals and conferences including the Annual Assembly of Hospice and Palliative Medicine. Through her advocacy, mentorship, and research of equitable hospice and palliative care, Dr. Doyon exemplifies the highest standards of HPNA's commitment to compassionate care.
Episode: October Issue with Special Guest Melissa McClean on a Geriatric Workforce Enhancement Program Host: Karl Steinberg, MD, HMDC, CMD Guest(s): Elizabeth Galik, PhD, CRNP (editor-in-chief); Melissa McClean, MSN, CRNP, ANP-BC, ACHPN In This Episode: In this episode, host Dr. Karl Steinberg, MD, CMD, and editor-in-chief Dr. Elizabeth Galik, PhD, CRNP, discuss our October issue of Caring for the Ages with guest Melissa McClean, MSN, CRNP, ANP-BC, ACHPN. Ms. McClean talks about a geriatric workforce enhancement program at the University of Maryland with baccalaureate nursing students. Drs. Galik and Steinberg also discuss our cover stories on antibiotic resistance in nursing homes and an upcoming new antibiotic in the urinary tract infection treatment tool kit, as well as an article about utilizing music with dementia patients. Featured Articles: Bolstering the Nursing Home Workforce through Geriatric Workforce Enhancement Programs, by Melissa McClean Antibiotic Resistance in Nursing Homes: A Reflection of the Global Crisis, by Glenn Tillotson and Angela Donald Pivmecillinam (Pivya): An Upcoming New Antibiotic in the Urinary Tract Infection Tool Kit, by Jessica Zering When Words Fail, Music Speaks, by Elizabeth Galik Date Recorded: October 3, 2024 Available Credit: The American Board of Post-Acute and Long-Term Care Medicine (ABPLM) issues CMD credits for select PALTtalk podcast episodes as follows: Claim CMD Credit
Episode: September 2024 Host: Karl Steinberg, MD, HMDC, CMD Guest(s): Joan Carpenter, PhD, CRNP, ACHPN, FPCN; Bridget Morse-Karzen, MPH; Paul Katz, MD, CMD (co-editor-in-chief) In This Episode: In this episode, host Karl Steinberg, MD, CMD, and co-editor-in-chief Paul Katz, MD, CMD, discuss three articles from the September issue. First, they talk with Joan Carpenter, PhD, CRNP, ACHPN, FPCN, about lessons learned from the Veterans Health Administration on the correlation between nursing home star ratings and the quality of end-of-life care. Next, they speak with Bridget Morse-Karzen, MPH, the first author of a systematic review paper examining post-acute care trends and disparities after joint replacements in the United States, focusing on data from 1991 to 2018. Finally, Paul Katz, MD, CMD, reviews a retrospective cohort study exploring the role of neighborhood socioeconomic status in institutionalization of home health care patients with and without Alzheimer's disease and related dementias. Articles Referenced: Nursing Home Star Ratings and End-Of-Life Care Quality: Lessons Learned From the Veterans Health Administration Post-Acute Care Trends and Disparities After Joint Replacements in the United States, 1991–2018: A Systematic Review The Role of Neighborhood Socioeconomic Status in Institutionalization of Home Health Care Patients With and Without Alzheimer's Disease and Related Dementias Date Recorded: September 24, 2024 Available Credit: The American Board of Post-Acute and Long-Term Care Medicine (ABPLM) issues CMD credits for select PALTtalk podcast episodes as follows: Claim CMD Credit
In this episode, HPNA and HPNF board members Rikki Hooper and Yvonne Ruathaiwat expand on their perspectives and experiences regarding the palliative continuum of care, and how they break down the silos between palliative care and hospice. About the Speakers: Moderator: Lynn Reinke, PhD, ANP-BC, FAAN, FPCN, ATSF Featuring: Richelle (Rikki) Hooper, MBA, MSN, FNP-BC, ACHPN, NE-BC, FPCN Yvonne Ruathaiwat, RN, MSN, GCNS-BC, NE-BC Rikki Nugent Hooper MBA, MSN, FNP-BC, ACHPN® NE-BC, FPCN Rikki Hooper joined Four Seasons, a not-for-profit Hospice and Palliative Care organization, in 2005 as a palliative care nurse practitioner and has been providing patient care since that time. Initially in a full-time clinical role she has also served in various leadership roles including Palliative Care Professional Development Director, Regional Director of Palliative Care, Vice President of Palliative Care and now Chief Clinical Operations Officer with leadership for both Hospice and Palliative Care programs. As a strong believer in quality care at end of life, Rikki consistently advocates for her patients and families to achieve their goals. Certified in Advanced Hospice and Palliative Nursing, she provides care for patients in all settings, both pediatric and adult in Palliative Care and Hospice services. She has presented at regional and national meetings on a variety of topics related to serious and advanced illness as well as operation of community-based programs and has served on the American Academy of Hospice and Palliative Medicine (AAHPM) Task Force for Quality, and on the Home-Based Workgroup for the Center to Advance Palliative Care. She has been part of the long-term care faculty for Bootcamp at the CAPC annual seminar for 3 years and facilitated Virtual Office Hours since 2018. Rikki is the author of several book chapters in APRN textbooks and Core Competencies and contributed to a number of articles published in HPM journals. She has been part of the core team for several Project Echo projects at Four Seasons. Rikki has provided both didactic education and mentoring to APRNs on Palliative Care and Hospice to local students over multiple years. Most recently she has attained certification as a Nurse Executive and was inducted as a 2023 Fellow in Hospice and Palliative Nursing. She has volunteered on the HPNA Clinical Forum planning committee, the AAHPM/HPNA Annual Assembly Abstract Review Committee, served as the Co-Chair for the Community Palliative Care SIG and currently serves as State Ambassador for North Carolina and on the FPCN Application Review Committee. Yvonne Ruathaiwat, MSN, RN, GCNS-BC, NE-BC, CCM, PHN Yvonne Ruathaiwat has a diverse clinical and leadership background across the care continuum. Yvonne most recently served as the Chief Operating Officer/Senior VP of Clinical Services for Hospice of the East Bay in Northern California. Her previous experience involved operations and quality improvements for Palliative Care service line, transition of care programs, post-acute ambulatory care, skilled nursing facility partnerships, and population health management for medical respite/high utilizer groups. Yvonne's past roles ranged from advanced practice nurse to adjunct professor. Yvonne obtained her Master of Science degree as a Geriatric Clinical Nurse Specialist with specialty in Nursing Education. With a passion to deliver seamless and timely access to services, Yvonne is certified as a nurse executive, case manager, and in hospice operations. She is active with the schools in her community to foster creativity and opportunities.
In this episode, Holli and Brett discuss the integration of the Family Frailty Score as an assessment tool for patients undergoing advanced heart failure therapies. Various key considerations surrounding the tool are discussed, including multidisciplinary team involvement, socioeconomic challenges, patient and family support, and more. Featuring: Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Holli Martinez FNP-BC, ACHPN®, FPCN Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Brett Snodgrass has been a registered nurse since 1997 and a family nurse practitioner since 2007, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain, and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She is a nationally recognized nurse practitioner, speaker and teacher. Brett Is a chronic pain expert, working for more than 20 years with chronic pain patients in a variety of settings. She currently serves on the TN Chronic Pain Task Force. She is a director at large of the TN Pain Society. Past awards include AANP State Excellence Award for Tennessee for her work across the state on the TN Chronic Pain Task Force, as well as advocating for TN Full Practice Authority for Nurse Practitioners and the 2017 Memphis Business Journal Healthcare Hero Award. Holli Martinez FNP-BC, ACHPN®, FPCN Holli has been a nurse for 26 years with the last 17 as an advanced practice registered nurse. In addition to providing palliative care consultations to patients and families, Holli also serves as the Program Director for the Supportive and Palliative Care Program at the University of Utah Hospital and Huntsman Cancer Institute; an adjunct faculty member for the University of Utah College of Nursing; past Board president for the Hospice and Palliative Nurses Association and the Hospice and Palliative Nurses Foundation; and faculty member for UCoPE - Utah Certificate of Palliative Education and Senior Faculty for VitalTalk. She is Board certified as a Family Nurse Practitioner and an Advanced Certified Hospice and Palliative Nurse. Holli has been inducted as an HPNA Fellow in Palliative Care Nursing and has been honored with the Cambia Foundation Sojourns Award and the American Association of Nurse Practitioners State of Utah Award for Excellence.
In this episode, we welcome HPNA and HPNF board members Craig Durie, DNP, CRNP, ACHPN®, RNFA and Blake J. Tobias Jr., MHCI, MS, HA-ODL. Moderated by Board President Lynn Reinke, PhD, ANP-BC, FAAN, FPCN, ATSF, the group discusses their respective roles within health care, highlighting their commitment to improving patient outcomes through innovative practices and leadership in their respective professions. Featuring: Craig Durie, DNP, CRNP, ACHPN®, RNFA Blake J. Tobias Jr., MHCI, MS, HA-ODL Craig Durie, DNP, CRNP, ACHPN®, RNFA Craig is a palliative care nurse practitioner working in an multi hospital inpatient consult-based practice in Eastern Pennsylvania. He is passionate about education and creating access through program development. He is a book author, educator, and TEDx speaker. During his 28 years of practice, he has worked in critical care, emergency medicine research, as an organ transplant coordinator, adjunct faculty, and colorectal surgical NP before finding his calling in palliative care. During his 13 years of palliative practice, he worked to develop the region's first palliative telemedicine consult service to reach underserved rural patients. Outside of the hospital he has engaged in state and national lobbying relating to diabetes care and full practice authority for nurse practitioners. Craig balances his professional activities with family, a love of gardening, biking, and the outdoors. Blake J. Tobias Jr., MHCI, MS, HA-ODL Blake Tobias, Jr., MHCI, MS HA-ODL, a first-generation college graduate, is a biologist turned administrator and educator with a proven record of pivotal and innovative leadership. Blake has been a member of the board since 2019 and currently is the Secretary/Treasurer for the HPNA and HPNF boards. He has previously held the positions of HPNF Board Treasurer, HPNF Board President, and HPNA/HPNF Co-Chair of Governance Committee. Blake is Senior Regional Practice Manager for the Penn Medicine Transplant Institute, overseeing a dozen satellite clinics for Kidney, Liver, and Pancreas transplant across Pennsylvania and New Jersey. Blake is also an Adjunct Professor of Professional Practice at the Albright College School of Business and Professional Studies, a doctoral student at Saint Joseph's University, and spends his time volunteering for numerous local and national board of directors. His professional experience focuses on health operations and disruptive innovation, with extensive experience managing process improvement, accreditation adherence and regulatory compliance, leading complex projects, budgets, and service integration, as well as managing stakeholder relations in various service lines, including General Hospital Operations, Oncology, and Solid Organ Transplantation. A member of the Saint Joseph's University 30under30 inaugural class, Blake was also one of six students awarded the President and Provost's Honor for Developing New Initiatives in Graduate and Professional Student Life in 2023 as a graduation honor from the University of Pennsylvania.
One of the biggest causes of amputations for diabetes patients is poor wound care. Different facilities offer different options leading to variances in outcomes. Anne Walsch, ANP-BC, CWOCN, ACHPN, AND WOC NP is joining us to talk about the gaps in wound care that led to her creating a digital solution. She is the brainchild behind "Wound Care Pro," an app that democratizes access to cutting edge treatments that clinicians can turn to when treating patients with wounds (to heal or palliate) & ostomies! It's available on iOS & Android.
In this episode, we welcome Dr. Christopher Kerr, who discusses his upcoming opening session for the Team Conference for Hospice & Palliative Care. Moderated by HPNA member and Team Conference planning committee chair Joan Carpenter, this episode touches on Dr. Kerr's experiences and published research that describes and validates patients' dreams and visions at the end of life. Learn more about the Team Conference for Hospice & Palliative Care and register today! About the Speakers: Moderator: Joan G. Carpenter, PhD, CRNP, ACHPN®, FPCN Featuring: Christopher Kerr, MD, PhD Joan is an expert in geriatric palliative care. She in an Assistant Professor at the University of Maryland School of Nursing, a Health Scientist at the US Department of Veterans Affairs, and a nurse practitioner with Coastal Hospice and Palliative Care. Her research focuses on the implementation and evaluation of non-pharmacologic palliative care interventions to improve the quality of life, reduce symptom burden, and enhance decision making for people living with serious illness and their care partners. Christopher is the Chief Medical Officer and Chief Executive Officer at Hospice & Palliative Care Buffalo. Born and raised in Toronto, Canada, Chris earned his MD as well as a PhD in Neurobiology. Outside of direct patient care, Chris' focus is in the area of patient advocacy. His passion is palliative care and a belief that such care should be throughout the continuum of illness. Under Dr. Kerr's medical leadership, Hospice Buffalo now serves 1,200 patients a day, the majority of whom receive services upstream of hospice care.
Constance Dahlin, MSN, ANP-BC, ACHPN®, FPCN, FAAN is a consultant to the Center to Advance Palliative Care, a palliative nurse practitioner at North Shore Medical Center and co-director of the Palliative APP Externship. Vincent Jay Vanston, MD FAAHPM HMDCB has been working in the field of Hospice and Palliative Medicine for over 25 years. His work now involves hospice care, hospital-based Palliative Medicine consultation, and medical education. Mary Lynn McPherson, PharmD, MA, MDE, BCPS is a Professor at the University of Maryland, Baltimore (UMB) and Executive Director of Advanced Post-Graduate Education. She developed the online Master of Science, Graduate Certificate and PhD Programs in Palliative Care at UMB, and teaches in several courses. She has practiced in hospice and palliative care her entire career, and is a prolific speaker and author in palliative care.
In this episode, we welcome Tracy Fasolino and Mansara Hassan, board members from the Hospice & Palliative Nurses Association (HPNA) and the Hospice & Palliative Nurses Foundation (HPNF), Moderated by Lynn Reinke, this episode discusses the considerations surrounding caring for underserved patients in rural and urban settings. Resources from the Episode: HPNA DEIB Style Guide HPNF Diversity in Health Care Video Series HPNA Research Agenda HPNA Advocacy Efforts About the Speakers: Moderator: Lynn Reinke, PhD, MSN, ARNP-BC, FAAN, FPCN Featuring Tracy Fasolino, PhD, FNP-BC, ACHPN, FPCN and Mansara Hassan, MSN, APRN, AGNP-C Tracy Fasolino, PhD, FNP-BC, ACHPN, FPCN is a Professor and Distinguished Palliative Care Leader at Clemson University School of Nursing, Clemson, SC. She is passionate about rural communities having lived in rural Appalachia all her life. She is a rising policy leader for underserved, rural communities. Tracy is honored to serve as a mentor to students and peers exploring primary and specialty palliative care. She was inducted as a Fellow of Palliative Care Nursing (FPCN) of the Hospice & Palliative Nurses Association (HPNA) in 2024, serves on the Board of Directors for HPNA and the Hospice & Palliative Nurses Foundation (HPNF), and is an HPNF Florence Wald Champion. Mansara Hassan, MSN, APRN, AGNP-C, is a Palliative Care Nurse Practitioner in Dallas, TX. She earned her Master of Science in Nursing from the University of Pennsylvania. Mansara is deeply committed to ensuring equitable access to palliative care. She is also passionate about teaching and empowering nurses and is a proud End of Life Nursing Education (ELNEC) trainer. Mansara is an HPNA member and serves on the Board of Directors for HPNA and HPNF.
In this captivating episode of Taking Healthcare by Storm, delve into the world of expert insights as Quality Insights Medical Director Dr. Jean Storm engages in a thought-provoking and informative discussion with Miranda Broyles, APRN, FNP-BC, ACHPN, Director of Palliative Care Services at HospiceCare.If you have any topics or guests you'd like to see on future episodes, reach out to us on our website. This material was prepared by Quality Insights, a Quality Innovation Network-Quality Improvement Organization under contract with the Centers for Medicare & Medicaid Services (CMS), an agency of the U.S. Department of Health and Human Services (HHS). Views expressed in this material do not necessarily reflect the official views or policy of CMS or HHS, and any reference to a specific product or entity herein does not constitute endorsement of that product or entity by CMS or HHS. Publication number 12SOW-QI-GEN-041924-GK
042 - ACHPN Review - The Conclusion: Amanda, Carissa and Steve close out discussing the ACHPN exam. Check out supplemental materials at epionepalliative.com.
This episode offers a CRUCIAL overview of the Medicare hospice benefit, utilization logistics for advanced lung disease patients, communication strategies, patient-focused methodology in discussions and additional resources to enhance providers' skill sets in caring for this important and vulnerable patient population.
041 ACHPN Prep Part 6 Intervention and Management Part 3 - Amanda, Carissa and Steve finish the Intervention and Management section of the ACHPN exam. Check out supplemental materials at epionepalliative.com!
“We really need to do our best to reach people who don't have access to palliative care in their communities, and this is an innovative way for us to do that,” Carey Ramirez, ANP-C, ACHPN, nurse practitioner and manager of advanced practice and supportive care medicine at the City of Hope National Medical Center in Duarte, CA, told Lenise Taylor, MN, RN, AOCNS®, BMTCN®, oncology clinical specialist at ONS, during a discussion about how telehealth is overcoming barriers and disparities that previously limited patients' access to timely oncology palliative care. You can earn free NCPD contact hours after listening to this episode and completing the evaluation linked below. Music Credit: “Fireflies and Stardust” by Kevin MacLeod Licensed under Creative Commons by Attribution 3.0 Earn 0.5 NCPD contact hours of nursing continuing professional development (NCPD), which may be applied to the care continuum, coordination of care, nursing practice, oncology nursing practice, psychosocial dimensions of care, quality of life, symptom management, palliative care, supportive care, treatment https://www.oncc.org/ilnaILNA categories, by listening to the full recording and completing an evaluation at myoutcomes.ons.org by October 20, 2025. The planners and faculty for this episode have no relevant financial relationships with ineligible companies to disclose. ONS is accredited as a provider of NCPD by the American Nurses Credentialing Center's Commission on Accreditation. The planners and faculty for this episode have no relevant financial relationships with ineligible companies to disclose. ONS is accredited as a provider of NCPD by the American Nurses Credentialing Center's Commission on Accreditation. Learning outcome: The learner will report an increase in knowledge related to telehealth-based oncology palliative care. Episode Notes Complete this evaluation for free NCPD. Oncology Nursing Podcast: Episode 251: Palliative Care Programs for Patients With Cancer Episode 135: ELNEC Has Trained More Than One Million Nurses in End-of-Life Care Episode 41: Advocating for Palliative Care and Hospice Education ONS Voice articles: Bipartisan PCHETA Legislation Reintroduced in U.S. Senate U.S. Senators Introduce Legislation for Earlier Palliative Care Help Your Patients Prepare for the End From the Beginning APRNs Can Lead by Example When Integrating Palliative Care in Practice Clinical Journal of Oncology Nursing articles: Palliative Care: Oncology Nurses' Confidence in Provision to Patients With Cancer Telehealth in Palliative Care: Communication Strategies From the COVID-19 Pandemic Clinical Oncology Nurse Best Practices: Palliative Care and End-of-Life Conversations Integrating Palliative Care in Hematopoietic Stem Cell Transplantation: A Qualitative Study Exploring Patient, Caregiver, and Clinician Perspectives ONS Palliative Care Huddle Card ONS clinical practice resource: Palliative Care Communication Strategies ONS book: Integration of Palliative Care in Chronic Conditions: An Interdisciplinary Approach Center to Advance Palliative Care (CAPC) Hospice and Palliative Nurses Association (HPNA) National Hospice and Palliative Care Organization (NHPCO) To discuss the information in this episode with other oncology nurses, visit the ONS Communities. To find resources for creating an ONS Podcast Club in your chapter or nursing community, visit the ONS Podcast Library. To provide feedback or otherwise reach ONS about the podcast, email pubONSVoice@ons.org. Highlights From Today's Episode “If a person is uncertain of their prognosis or if a provider is uncertain of the goals that the patient has for themselves, that might be an appropriate time to consider palliative consultation. These are all important considerations for triggers that might make palliative a possibility for patients in those scenarios. The take-home message, though, is that the sooner that palliative care is involved, the more likely the patient and family are to benefit.” TS 2:51 “From a patient and family perspective, we frequently find that there are misperceptions regarding palliative care. Oftentimes, they'll conflate the word palliative with either hospice or end-of-life care. They unfortunately sometimes believe that they're one and the same. They demonstrate a lack of knowledge regarding the benefits, including the fact that palliative care can and should be provided alongside life-prolonging care.” TS 3:53 “Palliative providers do their best to help patients maintain hope throughout their disease trajectory, regardless of how well or how poorly things are going. I tend to view things in terms of climbing a sand dune: Living with cancer can sometimes feel like you're walking up a sand dune, either at the beach or at the desert, and there will be days where you take two steps forward and you might slide only one step back. There may also be days where you take two steps forward and slide three steps back. And you find, for example, that if you keep trudging toward the top, that because the winds are constantly blowing those dunes, the top you eventually reach might be different than the one you initially set out to reach. And I think that speaks to the changing nature of hope.” TS 6:08 “It's important to ensure that providers are aware of the local services available to them in their respective communities. [And] we often find that from an organizational or a structural barrier perspective, there are lack of access to palliative care in the community. We often find that outpatient programs may not be as robust, or you may find that there is great variation between outpatient programs with regard to quality.” TS 10:10 “We have multiple patient populations who unfortunately do not have equal access to palliative care. They include rural populations, those who come from low socioeconomic backgrounds. We find that male patients and/or patients who are older adults have lower access to palliative care. We find that those who might be either single or live alone, those who might have an immigrant status, those who don't speak English, those who might have certain cancer diagnoses. It may surprise some of you to know that those with hematologic malignancies actually have much lower rates of palliative referral than those with solid tumors.” TS 11:23 “There's a maldistribution of palliative care resources nationwide. We tend to see that many of the resources are in urban areas, and as a result, we find that a great many rural areas are left untouched. I think it's important for us to recognize that these social determinants of health exist. It's important for us to look intentionally at them and whether they affect some of our patient populations and to work together to overcome them.” TS 14:03 “Anecdotally, I've been doing telehealth for about five years and it's been quite well received. It decreases my no-show rates. It improves my ability to monitor patients over time, and it can be carried out safely.” TS 16:12 “It's important to recognize that telehealth can be utilized not only for a planned appointment that might be scheduled to surveil someone every two weeks or every month from a pain and symptom management perspective, it can also be utilized as a same-day possibility. So if, for example, we have a patient who's due to have an MRI tomorrow and their last MRI was stopped in part because they couldn't tolerate it due to pain or symptoms, we might have a primary team reach out to us and ask whether we can see that patient the day prior to their MRI and devise a plan with that patient so that they can tolerate the MRI more easily the next day.” TS 22:26 “Many of our patients no longer have the ability to get to and from their place of worship, and we can sometimes bring their clergy people to them via telehealth video. We also offer psychology services, psychiatry services, child life services, all via telehealth. And I think it's important to recognize that palliative care is actually made up of an interdisciplinary team, including all of the aforementioned specialists who can basically work together to improve the experience of the patient who is living with cancer and being treated for it.” TS 26:41 “Accept the inevitability of ups and downs. Learn from the downs and persevere. The outcomes are definitely worth it.” TS 28:11
040 - ACHPN Prep Part 5 Intervention and Management Part 2 Amanda, Carissa and Steve discuss more pitfalls and pearls to help pass the ACHPN exam. Plus letters from listeners!
039 - ACHPN Prep PART 4 - Intervention and Management Part 1 - Join Dr. Steven Baumrucker, Medical Director of Ballad Health Palliative Medicine Associates and Associate Editor in Chief of the American Journal of Hospice and Palliative Medicine, as he speaks with Amanda Stevens, Nurse Practitioner and Clinical Educator for Ballad Health Systems Palliative Medicine Consult Service and Carissa Depew, DNP, Palliative and Hospice Nurse Practitioner at Ballad Health Hospice in part four of our new ongoing series designed to help APRNs pass the ACHPN exam.
038 - ACHPN PREP - PART 3: Assessment and Data Collection-Part 2 - Join Dr. Steven Baumrucker, Medical Director of Ballad Health Palliative Medicine Associates and Associate Editor in Chief of the American Journal of Hospice and Palliative Medicine, as he speaks with Amanda Stevens, Nurse Practitioner and Clinical Educator for Ballad Health Systems Palliative Medicine Consult Service and Carissa Depew, DNP, Palliative and Hospice Nurse Practitioner at Ballad Health Hospice in part three of our new ongoing series designed to help APRNs pass the ACHPN exam. Materials mentioned in this episode can be found here: https://epionepalliative.com
037 - ACHPN Prep PART 2 - Assessment and Data Collection - Part 1- Join Dr. Steven Baumrucker, Medical Director of Ballad Health Palliative Medicine Associates and Associate Editor in Chief of the American Journal of Hospice and Palliative Medicine, as he speaks with Amanda Stevens, Nurse Practitioner and Clinical Educator for Ballad Health Systems Palliative Medicine Consult Service and Carissa Depew, DNP, Palliative and Hospice Nurse Practitioner at Ballad Health Hospice in part two of our new ongoing series designed to help APRNs pass the ACHPN exam.
036 - ACHPN PREP - Part 1 Part one of our new ongoing series designed to help APRNs pass the ACHPN exam,
Having end-of-life discussions benefits all of us. Cassie Ferguson, APRN, ACHPN, shares everything you need to know about advance directives and how to facilitate these important conversations with your family.
Integrating advanced communication, symptom management and early Palliative Medicine
“Acknowledge that grief is a reoccurring theme. This isn't something that's a one and done. This is a process that you're going to continue to revisit, and in recognizing that, I think this allows us to be more proactive and responsive to this emotional part of our job,” ONS member Carla Jolley, MN, ARNP, ANP-BC, AOCN®, ACHPN, palliative care advanced practice nurse and coordinator for the palliative care consult service embedded within the oncology program at the Whidbey Health Medical Center in Coupeville, WA, told Jaime Weimer, MSN, RN, AGCNS-BC, AOCNS®, oncology clinical specialist at ONS, in a conversation about how oncology nurses can approach and manage the grief they face in their work. You can earn free NCPD contact hours after listening to this episode and completing the evaluation linked below. Music Credit: “Fireflies and Stardust” by Kevin MacLeod Licensed under Creative Commons by Attribution 3.0 Earn 1.00 contact hour of nursing continuing professional development (NCPD) by listening to the full recording and completing an evaluation at myoutcomes.ons.org by December 2, 2024. The planners and faculty for this episode have no relevant financial relationships with ineligible companies to disclose. ONS is accredited as a provider of NCPD by the American Nurses Credentialing Center's Commission on Accreditation. Learning outcome: Upon completion of this activity, the learner will report an increase in knowledge related to grief experienced by oncology nurses. Episode Notes Complete this evaluation for free NCPD contact hours. Oncology Nursing Podcast episodes: Episode 85: Nursing Resilience and Self-Care Aren't Optional Episode 135: ELNEC Has Trained More Than One Million Nurses in End-of-Life Care Episode 187: The Critical Need for Well-Being and Resiliency and How to Practice ONS Voice articles: When Grief Goes Beyond Burnout, Organizations Must Intervene A Deliberate Well-Being Plan Protects You From the Hazards of Your Work Use Storytelling to Hear Your Patient's Voice Clinical Journal of Oncology Nursing articles: Complicated Grief: Risk Factors, Interventions, and Resources for Oncology Nurses Songs for the Soul: A Program to Address a Nurse's Grief A Concept Analysis of Nurses' Grief Helping Nurses Cope With Grief and Compassion Fatigue: An Educational Intervention ONS course: Facilitating Intentional Conversations ONS Nurse Well-Being Learning Library ONS Information Regarding the Coronavirus (COVID-19) ONS Sympathy Notecards Journal of Radiology Nursing article: Can You PACE Yourself? Using PACE in the Clinical Setting, at End of Life and in Grief Work Dealing With GRIEF: A Series of Five Short, Powerful Videos com End-of-Life Nursing Education Consortium To discuss the information in this episode with other oncology nurses, visit the ONS Communities. To provide feedback or otherwise reach ONS about the podcast, email pubONSVoice@ons.org. Highlights From Today's Episode “Really look at where our own losses have happened in life, whether that's mapping out people who have passed on that we've cared for and loved that have had a lot of meaning to us, what kind of changes or transitions that have happened in our own lives. . . . There's a lot of loss that happens on a day-to-day basis, and so think about who we are and the accumulation of our own personal losses, because I think sometimes where it gets triggered in that secondary trauma is when we see ourselves in other people's situations.” Timestamp 09:48 “How good or challenged are you with boundaries? There's always going to be patients and situations that are going to tug at your heart, and that doesn't make you bad with boundaries. But if you're going home and always taking it all in and can't separate your work life from your personal life, then there's a place to start thinking about that as far as that assessment. Is there something I can do for myself to make this not so difficult? Because that of course leads to burnout and compassion fatigue.” TS 13:06 “I think the culture in our workplace can sometimes really impact our ability to be authentic and respond to our own personal grief.” TS 17:48 “Create a place and a space to debrief patients that we have lost. A place where we can remember and acknowledge, and not only acknowledge the names of the names . . . really reflect on those gifts and the learnings from the patients and families that you care for.” TS 18:48 “Acknowledge that grief is a reoccurring theme. This isn't something that's a one and done. This is a process that you're going to continue to revisit, and in recognizing that, I think this allows us to be more proactive and responsive to this emotional part of our job. I so recommend that you put a self-care plan in place ahead of time and be thinking about that.” TS 41:57 “We also need that card like from a game that says, ‘Call a friend.' If you are feeling overwhelmed, I really encourage you to identify who is going to be that call a friend name? Who is it that you can find as a partner or mentor that you can urgently debrief if something really tragic happened during your day? Maybe it's not your family or partner, and maybe it is. But sometimes I think that nurses' pain—we hold it and can share it with each other better. Because again, just like the families in their grief process, the telling of the story is important. It's important that we can tell it, and then it's also important that we can hear other people's stories and hold those in that container in that sacred space as well. So, find that ‘call a friend.'” TS 45:49
032 - ACHPN Certification Steve and Amanda discuss the process and benefits of ACHPN Certification for Advance Practice Nurses in Hospice and Palliative Medicine
We'll take you live behind the scenes to our operating rooms to find out what it takes to be a nurse at the health system. We'll look at what's driving the demand and talk about opportunities in nursing. Guests include: Karin Porter-Williamson, MD, Palliative Care; Marilyn Parker, DNP, APRN-CNS, ACHPN, Clinical Nurse Specialist, Palliative Medicine; and social worker Kate Shoemaker.
As we enter our third year of the pandemic, people are still dying from COVID-19 and many are left with long term health problems. A panel of experts from our Palliative Care team will show us how that care has changed, and why palliative care doesn't always mean hospice care. Guests include: Karin Porter-Williamson, MD, Palliative Care; Marilyn Parker, DNP, APRN-CNS, ACHPN, Clinical Nurse Specialist, Palliative Medicine; and social worker Kate Shoemaker.
Medical Decisions for a Loved One with a Life-Threatening Illness: Palliative Care for the CommunityBy: Dr. Gannel Jean-PierreMedical Decisions for a Loved One with a Life-Threatening Illness: Palliative Care for the Community by Dr. Gannel Jean-Pierre is a wonderful resource for people dealing with a life-threatening illness or who have a loved one in such a situation. Dr. Jean-Pierre blends real experience with sensitive, effective, and gentle advice to cater to most any situation within the palliative care spectrum. With examples from Jean-Pierre's vast expanse of clinical experience, this book is invaluable to those in this situation. Dr. Jean-Pierre masterfully uses reputable sources for great information and resources to help as much as possible during end-of-life care. This book is highly recommended to anybody who needs help understanding how to help loved ones in this situation, or what to expect if they themselves are going through terminal illness.About the AuthorDr. Gannel Jean-Pierre, FNP, BC, DNP, OCN, ACHPN, is a palliative care consultant for various skilled nursing facilities in the Bronx and Yonkers areas of New York. He is a passionate advocate for the rights of patients and/or responsible parties to be allowed to make informed and guided advance directives and medical decisions.Dr. Gannel Jean-Pierre earned a Bachelor's Degree in Nursing from the Nursing School of Fairfield University at Connecticut, a Master's Degree as a Family Nurse Practitioner from Southern Connecticut State University, and a Doctoral Degree as a Doctor in Nursing Practice from Columbia University in the city of New York. He was a fellow in the post-doctoral palliative care fellowship program at Columbia University in the city of New York. He is also an Advanced Certified Hospice and Palliative Nurse and an Oncology Certified Nurse.https://www.amazon.com/Medical-Decisions-Loved-Life-Threatening-Illness-ebook/dp/B08V19RSBDhttp://www.bluefunkbroadcasting.com/root/twia/31722kpp.mp3
At the onset of COVID, clinical nurse specialist, Pat J. Coyne, MSN, ACHPN and his team were prepared for a tidal wave to hit their hospital in Charleston, South Carolina. When it finally did, it changed everything—from the way they functioned to the way they went home. Listen to what kept his team going. This episode is hosted by Diane E. Meier, MD, FACP, FAAHPM. The views and opinions expressed on this podcast do not necessarily reflect the official policy or position of CAPC.
Trained in nursing, palliative care is a second career for palliative care after working in marketing. Dr. Grant trained as an acute care nurse practitioner and moved into palliative care. She completed a policy fellowship and has used her talent to push forward a palliative care agenda and facilitate better language in palliative care.
Trained as a nurse in cancer care and pain management, Mr. Coyne has been in palliative care in its evolution. He was one of the few PDIA nurse scholars and has been at the forefront of policy and has served as core faculty for ELNEC – National and International. He has edited several books related to palliative care.
Trained as a nurse, Dr. Paice is an expert in pain management and oncology care. She has served on national and international pain associations. She has also been an educator and mentor for palliative nurses as an international and national ELNEC faculty. She is a palliative and pain clinician at Northwestern.
Palliative Nursing Acute to Post Acute Transitions in Care: Challenges and Opportunities This episode of HPNA Podcast Corner welcomes guest Jennifer Gentry, DNP, ANP-BC, ACHPN, FPCN. Dr. Gentry is a nurse practitioner with the Duke University Palliative Care Consult Service, faculty at the Duke University School of Nursing, and a member of the Duke Hospital Ethics Committee. Prior to her current role, she provided medical care for older adults in acute, community, and skilled nursing settings. Dr. Gentry is a recipient of the HPNA Distinguished Nursing Practice Award, the Oncology Nursing Foundation End of Life Career Development Award, she was named one of North Carolina's Great 100 Nurses, named 2012 Advanced Certified Hospice and Palliative Nurse of the Year, and she received the Friends of Nursing Award for Nursing Mentorship. Dr. Gentry is an active member of HPNA. She served as president of the Board of Directors in 2014 and has served on multiple chapters and committees. Through her work with HPNA, the National Coalition for Hospice and Palliative Care, the Hospice and Palliative Nurses Foundation, and the Alliance for Excellence in Hospice and Palliative Nursing, Dr. Gentry has been a tireless advocate for hospice and palliative nursing and advance nursing practice. This episode addresses the importance of transitions in care for patients with serious illnesses and their families, challenges encountered during transitions in care, at-risk patient populations, and how to best address the challenges encountered during care transitions.
On this episode of WOCTalk, we sit down with Anne Walsh, ANP-BC, ACHPN, CWOCN, author of the ePoster “Palliative Wound Care Where Aggressive Symptom Management Is the Goal” that was presented at the WOCNext® 2021 conference. We discuss the role of the WOC nurse in palliative care, the free App called “Palliative Wound Pro” that Anne developed, telehealth consultations, wound healing, and much more! Episode Resources:Click here to view the ePoster “Palliative Wound Care Where Aggressive Symptom Management Is the Goal”.Click here to download the App Palliative Wound Pro for Apple devices.Click here to download the App Palliative Wound Pro for Android devices.If you missed WOCNext® 2021: A Virtual WOW Experience with the WOCN® Society and Relias, you could gain access to everything you missed during the live event for just $199. Click here to access the on-demand content.
Special Guests: Victoria Nalls, PhD, GNP-BC, CWS, ACHPN and Pamela Scarborough, PT, DPT, CWS, FAAWC Hosted By: Diane Sanders-Cepeda, DO, CMD Recorded: June 9, 2021 Our learning objectives for this session were: 1. Create an awareness of the silent skin manifestations related to COVID-19. 2. Discuss how to distinguish between skin manifestations related to COVID-19 and similar looking etiologies, such as shingles and deep tissue pressure ulcers/injuries. 3. Provide helpful documentation considerations for wounds that develop as a result of, or are stalled in their healing trajectory due to COVID-19. 4. Discuss COVID-19 long – haulers and the issues that arise with wound development and wound healing. 5. Introduce COVID-19 Skin Manifestations Campaign and discuss how facilities can participate. Available Credit: 0.25 CMD-Clinical Click here to access the PowerPoint Slides
Opioids and their use are already at epidemic proportions in the U.S. Their use has also escalated during the pandemic. Fran Hoh, an advanced practice nurse specializing in palliative care, shares her deep and comprehensive experience with opioid use in both home care and clinical settings, recent legislation, and the importance of listening to the patient’s needs. Fran comments that we had an opioid epidemic before we had COVID. Now with COVID, the statistics are just even more staggering. We have more opioid deaths and more opioid overdoses than we did even before. COVID has not made it any better, and really made it a lot worse. Underdosing and overdosing with opioids are risks. The American Association for Pain Management Nursing, ASPMN, has a brand new, hot off the press position statement on respiratory depression and assessing for respiratory depression with use of opiates, and who we should be especially careful to look for. One of the things they said is that 50% of the patients that are in the hospital will receive an opiate, and of that 50% 0.003% to 4.2% will have an adverse reaction. For those that have an adverse reaction, it will increase the length of stay. It will increase the cost of the care; it will put them more at risk to get other side effects or episodes of negative things happening to them. https://youtu.be/dmcElnS0XiM Because the correct or incorrect prescription and administration of opioids can be critical in a medical legal case, you will find this Legal Nurse podcast invaluable. Why is it important to know a patient’s medical conditions before prescribing opioids? Can people with addiction issues be prescribed opioids? How are the current laws regarding opioid prescriptions making people feel like criminals? What is the value of the Prescription Drug Monitoring Program (PDMP)? What challenges exist with the use of a PCA pump? How to Manage Your LNC Business and Clients: Top Tips for Success You’ve gotten your legal nurse consulting business started, you have clients, and you want to sustain your success. How can you manage that business in the best way? There are dozens of traps that can trip you if you aren't aware of them and prepared to tackle them. Pat knows - she founded and managed a multi-million dollar legal nurse consulting business - and saw plenty of opportunities for trouble. Let's face it - working with trial attorneys is a challenge. They are driven people who want to do their best for their client. There is a lot at stake in litigation, and you want to have strong relationships with them. In this book, you’ll learn how to deepen your connections with your clients through your communications. When conflict or the need to negotiate arises, the tips in this book will give you the confidence needed to tackle some of the world’s best negotiators. Being able to successfully master negotiation, business communication and conflict are essential. Discover how to win over and retain the clients you want and recognize those who are too much trouble. Pat shows you how. Enjoy this episode of Legal Nurse Podcast to get insights to these questions about the LNC as CEO This is the book to use to build a stable foundation for your business. Your Presenter Fran Hoh, PhD, APN, CS, ACHPN, is an advanced practice nurse who is passionate about end of life care. As such, her doctorate in health administration allowed her to focus her dissertation work on pain management. She currently practices in a hospital as the manager of the inpatient pain service, where she instituted the pain resource nurse program. In this role, Dr. Hoh has been responsible for educating hundreds of nurses to successfully advocate for improved patient pain management. Additionally, she has her own practice, Always Think Comfort, in which she provides palliative care services to patients in long term care facilities, with the goal of preventing unplanned and unnecessary ...
ONS member Betty Ferrell, PhD, MA, FAAN, FPCN, principal investigator of the End-of-Life Nursing Education Consortium (ELNEC) project, director of the Division of Nursing Research and Education at City of Hope National Medical Center in Duarte, CA, and member of the Greater Los Angeles ONS Chapter, joins ONS President Nancy Houlihan, MA, RN, AOCN®, to discuss ELNEC's history and milestone of training more than one million nurses in palliative and end-of-life care. Then, ONS members share personal testimonies about ELNEC and how the training has enhanced their practice. Music Credit: "Fireflies and Stardust" by Kevin MacLeod Licensed under Creative Commons by Attribution 3.0 Earn 0.75 contact hours of nursing continuing professional development (NCPD) by listening to the full recording and completing an evaluation at myoutcomes.ons.org by December 25, 2022. The planners and faculty for this episode have no conflicts to disclose, and the episode has no commercial support. ONS is accredited as a provider of NCPD by the American Nurses Credentialing Center's Commission on Accreditation. Episode Notes Introduction: 00:25 Interview: 01:36 Testimonies: 31:15 Jacqueline Boreland, MSN, RN, GERO-BC™, OCN®, CCDS: 31:28 Karin Elkins MSN, NPD-BC, OCN®: 33:46 Tracy Garrett-Reed DNP, APRN, AOCNP®, FNP-C: 38:34 Tiffany McConathy, MSN, FNP-C, APRN, AOCNP®: 40:38 Sara M Tinsley, PhD, APRN, AOCN®: 43:31 Jennifer Tschanz, RN, MSN, FNP, AOCNP®, ACHPN: 47:02 Check out these resources from today's episode: Complete this evaluation for free NCPD. ONS Voice article: ELNEC Milestone Marks Transformation of EOL Care for Countless Patients With Cancer ONS Voice article: Palliative Care Resources Comfort Nurses Through COVID-19 Stress, Dilemmas, and Grief ONS Voice palliative and end-of-life care topic pages Oncology Nursing Podcast Episode 41: Advocating for Palliative Care and Hospice Education Clinical Journal of Oncology Nursing article: Barriers to Hospice and Palliative Care Research: A Patient-Centered Approach to Intervention Studies Clinical Journal of Oncology Nursing article: Providing Palliative Care: Oncology Nurses' Perceptions of Their Self-Reported Abilities ONS Position Statement: Palliative Care for People With Cancer ELNEC courses ELNEC COVID-19 resources ELNEC tools for trainers
Gary Shelton, DNP, NP, ANP-BC, AOCNP, ACHPN, an Advanced Practice Hospice and Palliative Care Nurse, tells his story about how his professional and personal lives intersected while caring for his mother.
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